Talking Head Pain

In this episode of Talking Head Pain, Joe sits down with neurology experts Dr. Saikali and Dr. Blumenfeld. They explore the significant advances from past therapies to today's targeted treatments that offer new hope for migraine patients. Discover how the integration of new medical strategies and patient education is reshaping the way the condition is managed, aiming for what Dr. Blumenfeld calls “crystal clear days” of no pain and optimal life quality. Among the highlights in this episode: 01:50: Dr. Blumenfeld explains the shift in migraine management toward specific and effective medications with fewer side effects 02:12: Dr. Saikali emphasizes the importance of patients bringing comprehensive medical histories to consultations to ensure effective and efficient treatment planning 04:42: Dr. Blumenfeld describes the patient-provider partnership as a journey toward migraine freedom, stressing the goal of achieving “crystal clear days” 06:44: Dr. Saikali discusses the critical role of addressing comorbid conditions to improve the effectiveness of migraine medications 09:02: Joe and Dr. Blumenfeld discuss the importance of breaking the cycle of frequent migraine with newer treatments 14:19: Dr. Saikali and Dr. Blumenfeld explore the stigma around migraine 19:31: Joe discusses how proper migraine treatment has enabled him to address other health issues, highlighting the holistic impact of effective migraine management 23:03: Dr. Saikali advocates for patients to keep a health journal or find personal ways to monitor their progress, stressing the individualized nature of treatment 25:28: Dr. Blumenfeld encourages patients to be proactive in seeking early treatment Contact Our Hosts: Joe Coe, Chief Value, Growth, and Therapeutic Solutions Officer, Country Manager, Canada at GHLF: jcoe@ghlf.org Sarah Shaw, Associate Director, Diversity, Equity and Inclusion at GHLF: sshaw@ghlf.org A podcast episode produced by Ben Blanc, Associate Director, Digital Production and Engagement at GHLF. We want to hear what you think. Send your comments, or a video or audio clip of yourself, to podcasts@ghlf.org   Catch up on all our episodes on our website or on your favorite podcast channel.See omnystudio.com/listener for privacy information.

In this episode of Talking Head Pain, Sarah is joined by Shelby, a singer-songwriter navigating life with migraine and dysautonomia. Together, they delve into how chronic pain influences both personal and artistic endeavors. Shelby shares insights on how her condition has shaped her music career and the comfort she finds in her creative expression, offering listeners a window into the everyday triumphs and struggles faced by those living with chronic conditions. Among the highlights in this episode: 01:09: Shelby discusses how migraine has been both a destructive and constructive force in her life, emphasizing the dual nature of her experiences 02:47: The discussion turns to how migraine influenced Shelby's early life and how music became a therapeutic outlet for her 06:13: Shelby describes how she manages sound sensitivity around her performances, highlighting adjustments she makes to cope with migraine 09:30: Shelby speaks on the frustrations of navigating health insurance, expressing the challenges of securing treatment for chronic migraine 12:07: Sarah and Shelby discuss the importance of community support and understanding, particularly in managing chronic illness 14:15: Sarah and Shelby talk about the broader impact of migraine on public perception and personal identity 16:03: Shelby shares her approach to self-care, including therapy and maintaining social connections despite her chronic conditions Contact Our Hosts: Joe Coe, Chief Value, Growth, and Therapeutic Solutions Officer, Country Manager, Canada at GHLF: jcoe@ghlf.org Sarah Shaw, Associate Director, Diversity, Equity and Inclusion at GHLF: sshaw@ghlf.org A podcast episode produced by Ben Blanc, Associate Director, Digital Production and Engagement at GHLF. We want to hear what you think. Send your comments, or a video or audio clip of yourself, to podcasts@ghlf.org   Catch up on all our episodes on our website or on your favorite podcast channel.See omnystudio.com/listener for privacy information.

In this episode of Talking Head Pain, Sarah is joined by Chandler, a chronic pain recovery coach and migraine patient, to explore the realities of living with chronic migraine and cluster headaches. Chandler shares her experience with hemiplegic migraine and how it propelled her into a life dedicated to helping others manage their pain. The episode dives into the impact of chronic pain on mental health, the importance of recognizing the mind-body connection, and practical strategies for managing daily life with chronic pain. Among the highlights in this episode: 01:54: Chandler recounts her worst migraine attack, describing its sudden and severe impact 03:19: Sarah and Chandler discuss the variety and types of migraine attacks, including hemiplegic and vestibular migraines 07:52: Chandler explains how focusing on the mind-body connection radically improved her health 12:44: Sarah and Chandler explore the relationship between mental health and chronic pain, emphasizing the need for comprehensive treatment approaches 15:45: Chandler and Sarah discuss effective self-care strategies for managing chronic pain and migraine attacks 17:02: Sarah emphasizes the cultural pressures that often discourage taking breaks and how she learned to prioritize self-care to manage her chronic conditions effectively 19:05: Chandler reflects on the journey of embracing the mind-body connection as a transformative tool in her battle against chronic pain Contact Our Hosts: Joe Coe, Chief Value, Growth, and Therapeutic Solutions Officer, Country Manager, Canada at GHLF: jcoe@ghlf.org Sarah Shaw, Associate Director, Diversity, Equity and Inclusion at GHLF: sshaw@ghlf.org A podcast episode produced by Ben Blanc, Associate Director, Digital Production and Engagement at GHLF. We want to hear what you think. Send your comments, or a video or audio clip of yourself, to podcasts@ghlf.org  See omnystudio.com/listener for privacy information.

In this special episode of Talking Head Pain, Joe is joined by renowned headache specialists Dr. Tepper and Dr. Ailani to discuss a groundbreaking shift in migraine treatment accessibility. They delve into the recent endorsement by the American Headache Society of calcitonin gene-related peptide (CGRP) blockers as the primary preventive treatment for migraines, a move that promises to simplify the patient's journey toward relief. This discussion explores the implications for insurance and pharmacy benefit managers practices and patient care, providing hope and actionable advice for those living with migraine. Contact Our Hosts: Joe Coe, Chief Value, Growth, and Therapeutic Solutions Officer, Country Manager, Canada at GHLF: jcoe@ghlf.org Sarah Shaw, Associate Director, Diversity, Equity and Inclusion at GHLF: sshaw@ghlf.org A podcast episode produced by Ben Blanc, Associate Director, Digital Production and Engagement at GHLF. We want to hear what you think. Send your comments, or a video or audio clip of yourself, to podcasts@ghlf.org   Catch up on all our episodes on our website or on your favorite podcast channel.  See omnystudio.com/listener for privacy information.

In this episode of Talking Head Pain, Sarah is joined by Christa, a death doula and community care facilitator navigating the complex intersections of chronic illness and queer identity for Black, Indigenous and People of Color (BIPOC) individuals. Together, they explore Christa's journey through the debilitating impacts of migraine and endometriosis, highlighting the profound role of community care and self-advocacy in managing chronic conditions. This conversation sheds light on the resilience required to live authentically while coping with chronic pain, offering insights and solidarity to those on similar paths. Among the highlights in this episode: 01:16: Christa highlights the significance of Pride Month and discusses the pain associated with queer history, emphasizing that existence as queer people of color with disabilities is an act of resistance 03:01: Christa describes how migraine attacks have been a longstanding issue since high school, often overlooked due to other health challenges, and particularly exacerbated by hormonal changes 06:14: Christa talks about the professional challenges posed by migraine, affecting their ability to work on screens and requiring time off, which impacted her past employment 07:01: Sarah and Christa discuss the complexities of managing multiple chronic illnesses, including the crucial timing of medication to handle migraine symptoms effectively 08:36: Christa explains how transitioning to self-employment has allowed them to manage their health better, accommodating their migraines and other chronic conditions more effectively 10:22: Christa reflects on the cultural and familial challenges of addressing chronic conditions within immigrant families, highlighting the gap between generational approaches to health and wellness 13:46: Christa discusses the evolution of their support systems and the challenges of initiating conversations about needs and support with loved ones, especially during significant life transitions 18:07: Christa discusses the importance of creating care plans, especially within the context of chronic illness and disability 22:20: Christa emphasizes the importance of workplace accommodations for chronic illnesses and advocates for better understanding and support from employers 27:36: Christa shares personal strategies for dealing with bad days due to chronic conditions, emphasizing the importance of resting and listening to one's body Contact Our Hosts: Joe Coe, Director, Chief Value, Growth, and Therapeutic Solutions Officer, Country Manager, Canada at GHLF: jcoe@ghlf.org Sarah Shaw, Associate Director, Diversity, Equity and Inclusion at GHLF: sshaw@ghlf.org A podcast episode produced by Ben Blanc, Associate Director, Digital Production and Engagement at GHLF. We want to hear what you think. Send your comments, or a video or audio clip of yourself, to podcasts@ghlf.org   Catch up on all our episodes on our website or on your favorite podcast channel.See omnystudio.com/listener for privacy information.

In this special episode of Talking Head Pain, Joe speaks with Dr. Christopher Gottschalk, Director of Headache Medicine and the Headache Medicine Training Program at Yale University, Connecticut, live from the American Headache Society's scientific meeting. Dr. Gottschalk shares insights from a new study revealing how prolonged use of anti-CGRP drugs can reduce prodromal symptoms and the occurrence of headaches. He discusses the evolving understanding of migraine phases and the broader impacts of treatment on quality of life and cognitive function. Join Joe and Dr. Gottschalk as they discuss these significant advancements in migraine treatment and education. Contact Our Hosts: Joe Coe, Director, Chief Value, Growth, and Therapeutic Solutions Officer, Country Manager, Canada at GHLF: jcoe@ghlf.org Sarah Shaw, Associate Director, Diversity, Equity and Inclusion at GHLF: sshaw@ghlf.org A podcast episode produced by Ben Blanc, Associate Director, Digital Production and Engagement at GHLF. We want to hear what you think. Send your comments, or a video or audio clip of yourself, to podcasts@ghlf.org   Catch up on all our episodes on our website or on your favorite podcast channel.See omnystudio.com/listener for privacy information.

In this special episode of Talking Head Pain, Joe is live from the American Headache Society's scientific meeting with Alicia Duyvejonck, a nurse practitioner at Genesis Headache Clinic in Davenport, Iowa. Together they discuss a research poster to which they both contributed titled "Person-Centric Communications in Migraine: Delphi-Like Consensus on Best Practice." This study, conducted using the Delphi consensus model, involved headache neurologists, nurse practitioners, psychologists, and advocacy community representatives, focusing on enhancing communication between patients and health care professionals in migraine care. They emphasize the importance of person-centric communication and individualizing treatment, highlighting key recommendations for both providers and patients to improve understanding and reduce migraine stigma.Join Joe and Alicia as they explore how effective communication is essential in managing this heterogeneous condition and fostering shared decision-making. Contact Our Hosts: Joe Coe, Director, Chief Value, Growth, and Therapeutic Solutions Officer, Country Manager, Canada at GHLF: jcoe@ghlf.org Sarah Shaw, Associate Director, Diversity, Equity and Inclusion at GHLF: sshaw@ghlf.org A podcast episode produced by Ben Blanc, Associate Director, Digital Production and Engagement at GHLF. We want to hear what you think. Send your comments, or a video or audio clip of yourself, to podcasts@ghlf.org   Catch up on all our episodes on our website or on your favorite podcast channel.See omnystudio.com/listener for privacy information.

In this special episode of Talking Head Pain, Joe is live from the American Headache Society's scientific meeting with Dr. Mario Peres, President-Elect of the International Headache Society. Dr. Peres, hailing from São Paulo, Brazil, discusses the application of artificial intelligence (AI) in migraine diagnosis and management. They discuss how AI tools are being developed to improve diagnostic accuracy, which is crucial for effective treatment. Dr. Peres emphasizes the importance of validating these AI models to ensure they provide reliable and useful outcomes.  Join Joe and Dr. Peres as they delve into the future of migraine care, emphasizing technology's role in enhancing patient self-management and care strategies. Contact Our Hosts: Joe Coe, Director, Chief Value, Growth, and Therapeutic Solutions Officer, Country Manager, Canada at GHLF: jcoe@ghlf.org Sarah Shaw, Associate Director, Diversity, Equity and Inclusion at GHLF: sshaw@ghlf.org A podcast episode produced by Ben Blanc, Associate Director, Digital Production and Engagement at GHLF. We want to hear what you think. Send your comments, or a video or audio clip of yourself, to podcasts@ghlf.org   Catch up on all our episodes on our website or on your favorite podcast channel.See omnystudio.com/listener for privacy information.

In this special episode of Talking Head Pain, Joe speaks with Dr. Nada Hindiyeh, Director of Headache Medicine at Metrodora Institute and CMO at Haven Headache & Migraine Center, and Dr. Lauren Natbony, Founder and CEO of Integrative Headache Medicine of New York. Recorded live at the American Headache Society's (AHS) Annual Scientific Meeting in San Diego, CA, they discuss the complex interrelations between migraine, autonomic disorders such as POTS, Ehlers-Danlos Syndrome, and Mast Cell Activation Syndrome (MCAS). They highlight the importance of a holistic approach to treatment and the innovative work being done to create special interest groups within the AHS to address these issues. Join them as they share insights and advances in treating these interconnected conditions. Contact Our Hosts: Joe Coe, Director, Chief Value, Growth, and Therapeutic Solutions Officer, Country Manager, Canada at GHLF: jcoe@ghlf.org Sarah Shaw, Associate Director, Diversity, Equity and Inclusion at GHLF: sshaw@ghlf.org A podcast episode produced by Ben Blanc, Associate Director, Digital Production and Engagement at GHLF. We want to hear what you think. Send your comments, or a video or audio clip of yourself, to podcasts@ghlf.org   Catch up on all our episodes on our website or on your favorite podcast channel.See omnystudio.com/listener for privacy information.

In this episode of Talking Head Pain, Sarah welcomes Katrina, a patient advocate navigating multiple conditions including migraine and endometriosis. They discuss Katrina's journey — from years of misdiagnosis to finally finding a doctor who would listen and offer effective migraine treatment options. Katrina and Sarah dive into the overlap of endometriosis and migraine advocacy, highlighting the challenges and breakthroughs along the way. This discussion provides insights into the daily realities of shared decision-making with your health care team, the journey to diagnosis, and the importance of self-advocacy. Among the highlights in this episode: 02:05: Katrina describes the onset and progression of their migraine attacks, providing insights into the symptoms that go beyond a typical headache 03:58: Katrina shares their journey from misdiagnosis to finally getting a correct diagnosis and effective treatment plan, emphasizing the pivotal role of a neurologist 04:25: Sarah and Katrina discuss the overlap of endometriosis and migraine, and the challenges of being heard and properly diagnosed 07:26: Katrina and Sarah discuss the impact of advocacy in navigating health care and the importance of self-advocacy in chronic illness management 08:53: Katrina reflects on how their advocacy in endometriosis has empowered them in other areas such as migraine 14:41: Sarah and Katrina discuss the emotional and physical toll of chronic illness and the societal pressures that affect how people manage their health 19:11: Katrina expresses their approach to health management amidst advocacy fatigue 20:29: Closing thoughts on the importance of prioritizing personal health and the collective need for better health care understanding and support Contact Our Hosts: Joe Coe, Director, Chief Value, Growth, and Therapeutic Solutions Officer, Country Manager, Canada at GHLF: jcoe@ghlf.org Sarah Shaw, Associate Director, Diversity, Equity and Inclusion at GHLF: sshaw@ghlf.org A podcast episode produced by Ben Blanc, Associate Director, Digital Production and Engagement at GHLF. We want to hear what you think. Send your comments, or a video or audio clip of yourself, to podcasts@ghlf.org   Catch up on all our episodes on our website or on your favorite podcast channel.See omnystudio.com/listener for privacy information.

In this episode of Talking Head Pain, Sarah is joined by Nicole, a nursing student living with migraine. Nicole shares her harrowing journey, the challenges of navigating health care, and how she turned her struggle into advocacy for herself and others. Nicole's experiences highlight the power of advocacy, the impact of stigma, and the importance of community support in living with migraine. Join Sarah and Nicole for an episode that offers valuable insights for anyone looking to advocate for better migraine care and understanding. Among the highlights in this episode: 01:20: Nicole recounts a severe migraine attack following a concussion in 2016, detailing the array of debilitating symptoms she experienced 02:25: Nicole discusses how educating herself about migraine, joining support groups, and learning to advocate for herself were crucial steps in managing her condition 03:50: Nicole shares practical advice on preparing for medical appointments, including keeping detailed health records and symptom notes to improve communication with health care providers 06:13: Nicole and Sarah highlight the significance of finding a community through support groups, sharing experiences, and not feeling alone in the journey with migraine 07:35: Nicole discusses the challenge of advocating for herself among family and friends and the importance of sharing personal stories to educate others about the realities of living with migraine 13:31: Nicole reflects on what motivated her to seek better treatment and care, emphasizing the role of research, therapy, and the determination to live independently despite her condition 15:26: Nicole acknowledges that despite best efforts, some people still struggle with migraine management due to the unique ways migraine affects each individual Contact Our Hosts: Joe Coe, Chief Value, Growth, and Therapeutic Solutions Officer, Country Manager, Canada at GHLF: jcoe@ghlf.org Sarah Shaw, Associate Director, Diversity, Equity and Inclusion at GHLF: sshaw@ghlf.org A podcast episode produced by Ben Blanc, Associate Director, Digital Production and Engagement at GHLF. We want to hear what you think. Send your comments, or a video or audio clip of yourself, to podcasts@ghlf.org   Catch up on all our episodes on our website or on your favorite podcast channel.See omnystudio.com/listener for privacy information.

In this special episode of Talking Head Pain, Sarah is joined by colleagues Kelly Gavigan and Eric Stone as they delve into the nuances of episodic migraine care. They discuss GHLF's UpEnd Migraine Project, which aims to enhance health care provider education in primary and emergency care settings for better migraine management. Through a conversation that spans personal experiences and the project's objectives, the episode sheds light on the challenges and opportunities in treatment for those living with episodic migraine. If you are a health care provider or a patient living with episodic migraine, make sure to listen to the episode and participate in our survey. This will help more patients like you, get diagnosed and on proper treatment. Healthcare, Nurse & ER Practitioner Survey: https://www.research.net/r/FBDYLHM Episodic Migraine Patient Survey: https://singuser0bd3f30c.iad1.qualtrics.com/jfe/form/SV_0OGZIOGI0mmtMsm?Source=Ext Contact Our Hosts: Joe Coe, Director, Therapeutic Area Growth and Integration at GHLF: jcoe@ghlf.org Sarah Shaw, Senior Manager of BIPOC Community Outreach at GHLF: sshaw@ghlf.org A podcast episode produced by Ben Blanc, Manager of Programs & Special Projects at GHLF. We want to hear what you think. Send your comments, or a video or audio clip of yourself, to podcasts@ghlf.org   Catch up on all our episodes on our website or on your favorite podcast channel.See omnystudio.com/listener for privacy information.

In this special episode of Talking Head Pain, recorded live at Headache on the Hill, Sarah brings together a diverse group of patient advocates to share their personal stories and reasons for advocating for migraine awareness and better treatment access. The episode delves into the importance of advocacy, the need for improved health care policies, and the power of sharing one's story to break the silence and stigma surrounding chronic migraine. Join Sarah and her guests for an inspiring episode that highlights the collective effort of the migraine community to make a lasting impact on the hill and beyond. Contact Our Hosts: Joe Coe, Director, Therapeutic Area Growth and Integration at GHLF: jcoe@ghlf.org Sarah Shaw, Senior Manager of BIPOC Community Outreach at GHLF: sshaw@ghlf.org A podcast episode produced by Ben Blanc, Manager of Programs & Special Projects at GHLF. We want to hear what you think. Send your comments, or a video or audio clip of yourself, to podcasts@ghlf.org   Catch up on all our episodes on our website or on your favorite podcast channel.See omnystudio.com/listener for privacy information.

In this episode of Talking Head Pain, Joe is joined by Dr. Andrew Charles, Professor of Neurology and Director of the UCLA Migraine and Pain Program, as well as the current President of the American Headache Society (AHS). Together, they explore the groundbreaking updates in migraine prevention therapy, highlighting the AHS's recent position on CGRP inhibitors as a first-line treatment. Dr. Charles shares insights into the development of these migraine-specific therapies, their efficacy, and the significant impact they have on patients' lives, offering a glimpse into the future of migraine management.  Join Joe and Dr. Charles for a compelling conversation that shines a light on the latest advancements in migraine treatment and the positive changes they bring to the migraine community. For more information, visit: https://ghlf.org/migraine/ahs-recommends-cgrp-therapies/  Contact Our Hosts: Joe Coe, Director, Therapeutic Area Growth and Integration at GHLF: jcoe@ghlf.org Sarah Shaw, Senior Manager of BIPOC Community Outreach at GHLF: sshaw@ghlf.org A podcast episode produced by Ben Blanc, Manager of Programs & Special Projects at GHLF. We want to hear what you think. Send your comments, or a video or audio clip of yourself, to podcasts@ghlf.org   Catch up on all our episodes on our website or on your favorite podcast channel.See omnystudio.com/listener for privacy information.

In this episode of Talking Head Pain, Sarah is joined by Nahid Shukralla, a migraine patient and visual artist who uniquely intertwines her experiences living with migraine into her artwork. Nahid shares her journey and how chronic migraine led her back to her first love: art. Nahid also delves into her innovative approach to visualizing migraine auras through digital art, offering a rare glimpse into the visual phenomena that many with migraine experience but are seldom able to share. Join Sarah and Nahid for an inspiring episode that bridges the worlds of art, medicine, and lived experience, providing insights and validation for those on a similar journey. Among the highlights in this episode: 04:05: Sarah reflects on Nahid's experience, emphasizing the specific challenges and limitations that pregnant individuals face when dealing with migraine treatments, sparking a discussion on the need for safer and more effective treatment options 04:53: Nahid recounts her lifelong passion for art, and what led her from a career in medicine to embracing her true calling in the arts 07:07: Nahid shares how she pivoted careers, offering listeners insights into navigating personal and professional life with a chronic condition 08:53: Nahid discusses her inspiration for using her art to capture the dynamic nature of auras 13:35: Nahid discusses the positive feedback and validation she has received from the migraine community on Instagram 15:44: Sarah and Nahid discuss the significant impact of visual representation for those with migraine, highlighting how Nahid's art has provided a template for others to explain and validate their experiences, potentially aiding in medical and social understanding 17:26: Nahid speaks on her self-care routine and the adjustments she's made in her life to manage living with chronic migraine 19:46: Sarah and Nahid discuss the importance of openness and support from family and friends in managing chronic illness, advocating for a society that understands and accommodates the limitations of those living with conditions like migraine Read more about Nahid: https://ghlf.org/advocacy/painting-and-animating-to-raise-migraine-awareness/ Contact Our Hosts: Joe Coe, Director, Therapeutic Area Growth and Integration at GHLF: jcoe@ghlf.org Sarah Shaw, Senior Manager of BIPOC Community Outreach at GHLF: sshaw@ghlf.org A podcast episode produced by Ben Blanc, Manager of Programs & Special Projects at GHLF. We want to hear what you think. Send your comments, or a video or audio clip of yourself, to podcasts@ghlf.org   Catch up on all our episodes on our website or on your favorite podcast channel.See omnystudio.com/listener for privacy information.

In this episode of Talking Head Pain, Sarah is joined by chronic migraine patient Taylor, to explore the intricacies of living with chronic migraine and navigating the health care system. They discuss the evolution of emergency care for migraine patients, the shifting landscape of migraine treatment, and how living in pain can affect our mental health. The episode also touches on the critical role of patients in treatment decisions, the stigma surrounding migraine, and how just being fine, is not fine when it comes to patient health. Join Sarah and Taylor for a heartfelt conversation that underscores the importance of support, understanding, and advocacy in the migraine community. Among the highlights in this episode: 01:33: Taylor discusses her worst migraine attack, detailing the intensity and confusion between a migraine and a stroke, emphasizing the severity of her condition and the challenges of seeking ER treatment 03:30: Sarah and Taylor discuss the stigma around migraine and the importance of education and understanding in both medical treatment and social acceptance 04:27: Taylor shares her approach to living authentically with chronic migraine, highlighting the importance of transparency in personal and professional relationships to manage expectations and foster understanding 06:44: Sarah reflects on her experience disclosing her chronic illness at work, contrasting negative and positive employer responses, underscoring the importance of supportive work environments 08:59: Taylor details her journey through the health care system, illustrating the trial and error process of finding effective migraine care 13:43: Taylor discusses her proactive role in her treatment journey, including tracking symptoms, educating herself, and advocating for better care, highlighting the importance of patient involvement in health care decisions 17:00: Taylor shares her experience with new migraine treatments and the significant improvement in her condition, emphasizing the impact of advancements in migraine medication and the importance of persistence in seeking effective treatment 20:29: The episode closes with a discussion on the interplay between chronic pain, mental health, and the importance of advocacy and education in improving outcomes for those living with migraine Contact Our Hosts: Joe Coe, Director, Therapeutic Area Growth and Integration at GHLF: jcoe@ghlf.org Sarah Shaw, Senior Manager of BIPOC Community Outreach at GHLF: sshaw@ghlf.org A podcast episode produced by Ben Blanc, Manager of Programs & Special Projects at GHLF. We want to hear what you think. Send your comments, or a video or audio clip of yourself, to podcasts@ghlf.org   Catch up on all our episodes on our website or on your favorite podcast channel.See omnystudio.com/listener for privacy information.

In this episode of Talking Head Pain, Joe Coe welcomes Izac Ross, Founder of the Haven Headache & Migraine Center and a patient advocate. They delve into Izac's lifelong journey with migraine, beginning with his childhood diagnosis and the challenges of dealing with the condition through various stages of life. Izac discusses his experiences with a range of treatments, highlighting the transformative effects of newer therapies like CGRP inhibitors and Botox. The conversation also emphasizes the importance of not settling for subpar treatment, advocating for oneself in medical settings, and managing a career while coping with chronic migraine. Among the highlights in this episode: 01:33: Izac describes the migraine he experienced the weekend prior to the recording 02:30: Izac highlights the social challenges and masking involved with invisible disabilities like migraine 03:19: Izac shares his early diagnosis at age 2, the rarity of pediatric migraine diagnoses at that time, and the challenges he faced 05:19: Izac and Joe discuss Izac's pursuit of “migraine freedom” and his experience with treatment advancements, including Botox and CGRP inhibitors 09:06: Izac emphasizes the importance of advocating for proper treatment and support 11:15: Izac discusses the importance of self-care, setting boundaries, and empowering others in a leadership role 13:59: Joe and Izac discuss the necessity of overperforming to compensate for the debilitating symptoms of migraine 15:31: Izac shares the importance of early disclosure of his condition to employers and the role of managers in providing reasonable accommodations 16:59: Izac explains the motivation and goals behind the creation of the Haven Headache & Migraine Center, emphasizing access to quality care and crisis management 19:50: Izac concludes by inviting listeners to check out the Haven Headache & Migraine Center online, discussing their clinical team, and plans for expansion For more information go to https://www.havenheadache.com/ You can also find Izac on Instagram with the handle @gaywithaheadache Contact Our Hosts: Joe Coe, Director, Therapeutic Area Growth and Integration at GHLF: jcoe@ghlf.org Sarah Shaw, Senior Manager of BIPOC Community Outreach at GHLF: sshaw@ghlf.org A podcast episode produced by Ben Blanc, Manager of Programs & Special Projects at GHLF. We want to hear what you think. Send your comments, or a video or audio clip of yourself, to podcasts@ghlf.org   Catch up on all our episodes on our website or on your favorite podcast channel.See omnystudio.com/listener for privacy information.

In this episode of Talking Head Pain, Joe Coe welcomes Dr. Andrew Blumenfeld, Director of The Los Angeles Headache Center and a world-renowned headache specialist who helped develop the Botox injection protocol used in the pivotal migraine trials. They delve into the complexities of migraine management, discussing recently introduced concepts like "migraine freedom" and the multimodal approach to treatment. Dr. Blumenfeld addresses the challenges in navigating patient care within the constraints of insurance companies. The conversation also sheds light on the critical role of caffeine in migraine control and explores the often-overlooked symptoms experienced between migraine attacks. Join Joe and Dr. Blumenfeld in an informative conversation that offers new perspectives and hope for migraineurs. Among the highlights in this episode: 02:16: Dr. Blumenfeld and Joe discuss the term "migraine freedom," its origins, and patient experiences related to it 04:21: Joe and Dr. Blumenfeld expand on controlling migraine versus curing it, and how each patient's control needs can be different 05:11: Dr. Blumenfeld explains the multimodal approach to migraine treatment, emphasizing the importance of combining treatments for better control 07:28: Dr. Blumenfeld discusses his recently published paper on the Multimodal Approach to Migraine Freedom and its significance 09:27: Dr. Blumenfeld talks about the long-term journey of migraine treatment and the shared decision-making process between doctors and patients 12:26: Joe and Dr. Blumenfeld discuss managing treatment expectations with patients, highlighting the challenges with insurance companies and the importance of shared decision-making 16:05: Joe shares his personal experience with insurance challenges in accessing effective migraine treatment 18:50: Dr. Blumenfeld talks about comorbidities and coexisting diseases that can drive headache disorders, like sleep apnea and its impact 21:15: Joe and Dr. Blumenfeld discuss caffeine's role in migraine management, its misconceptions, and guidance on its usage 26:57: Dr. Blumenfeld highlights the importance of understanding the process that providers undergo to achieve a higher level of control over migraine, including dealing with insurance companies 29:31: Dr. Blumenfeld brings up the concept of the interictal period in migraine, focusing on symptoms that persist between migraine attacks and their impact on patients Contact Our Hosts: Joe Coe, Director, Therapeutic Area Growth and Integration at GHLF: jcoe@ghlf.org Sarah Shaw, Senior Manager of BIPOC Community Outreach at GHLF: sshaw@ghlf.org A podcast episode produced by Ben Blanc, Manager of Programs & Special Projects at GHLF. We want to hear what you think. Send your comments, or a video or audio clip of yourself, to podcasts@ghlf.org   Catch up on all our episodes on our website or on your favorite podcast channel.See omnystudio.com/listener for privacy information.

In this special episode, Joe speaks with Dr. Anne Luebke at the European Headache Congress in Barcelona. Dr. Luebke, a researcher and Associate Professor at the University of Rochester in New York, shares insights into her work and research on vestibular migraine. She explains the challenges in treating this condition, particularly the ineffectiveness of older migraine medications in addressing vertigo symptoms. Dr. Luebke offers hope, citing ongoing research into new therapies and emphasizes the potential need for a multi-therapy approach to effectively manage vestibular migraine. Contact Our Hosts: Joe Coe, Director, Therapeutic Area Growth and Integration at GHLF: jcoe@ghlf.org Sarah Shaw, Senior Manager of BIPOC Community Outreach at GHLF: sshaw@ghlf.org A podcast series produced by Ben Blanc, Manager of Programs & Special Projects at GHLF. We want to hear what you think. Send your comments, or a video or audio clip of yourself, to podcasts@ghlf.org   Catch up on all our episodes on our website or on your favorite podcast channel.See omnystudio.com/listener for privacy information.

In this special episode, Joe speaks with Dr. Franchesca Fiorito, Board Certified Neurologist & Headache Subspecialist in Puerto Rico, at the European Headache Congress in Barcelona. Dr. Fiorito shares her extensive work in advancing headache medicine, and details her efforts in establishing headache medicine education, clinics, and a specialized headache center tailored for patient comfort. The conversation touches upon the challenges of patient education, accessing specialized care, and dealing with local insurance companies. Dr. Fiorito also discusses her efforts in fostering collaboration between neurology and rheumatology to better understand and treat pain disorders. Contact Our Hosts: Joe Coe, Director, Therapeutic Area Growth and Integration at GHLF: jcoe@ghlf.org Sarah Shaw, Senior Manager of BIPOC Community Outreach at GHLF: sshaw@ghlf.org A podcast series produced by Ben Blanc, Manager of Programs & Special Projects at GHLF. We want to hear what you think. Send your comments, or a video or audio clip of yourself, to podcasts@ghlf.org   Catch up on all our episodes on our website or on your favorite podcast channel.See omnystudio.com/listener for privacy information.

In this special episode of Talking Head Pain, Joe speaks with Dr. Miguel Lainez, Chairman of the Department of Neurology at the Hospital Clínico Universitario, and Professor of Neurology at the Catholic University of Valencia, at the European Headache Congress in Barcelona. Dr. Miguel Lainez shares his valuable insights on key topics at this year's congress, including medication overuse headaches and vestibular migraine. He underscores the significance of new treatments like monoclonal antibodies and highlights the importance of patient education and reducing stigma associated with migraine. Contact Our Hosts: Joe Coe, Director, Therapeutic Area Growth and Integration at GHLF: jcoe@ghlf.org Sarah Shaw, Senior Manager of BIPOC Community Outreach at GHLF: sshaw@ghlf.org A podcast series produced by Ben Blanc, Manager of Programs & Special Projects at GHLF. We want to hear what you think. Send your comments, or a video or audio clip of yourself, to podcasts@ghlf.org   Catch up on all our episodes on our website or on your favorite podcast channel.See omnystudio.com/listener for privacy information.

In this special episode of Talking Head Pain, Joe speaks with Dr. Jana-Isabel Huhn-Doll at the European Headache Congress in Barcelona. Dr. Huhn-Doll, a neurologist and pain specialist from Germany, shares insights into the use of Botox for chronic migraine treatment. Together they discuss the PHASE III Research Evaluating Migraine Prophylaxis Therapy (PREEMPT) protocol and the 'follow the pain' approach, which offers a more individualized treatment plan by targeting specific pain areas as identified by patients. Contact Our Hosts: Joe Coe, Director, Therapeutic Area Growth and Integration at GHLF: jcoe@ghlf.org Sarah Shaw, Senior Manager of BIPOC Community Outreach at GHLF: sshaw@ghlf.org A podcast series produced by Ben Blanc, Manager of Programs & Special Projects at GHLF. We want to hear what you think. Send your comments, or a video or audio clip of yourself, to podcasts@ghlf.org   Catch up on all our episodes on our website or on your favorite podcast channel.See omnystudio.com/listener for privacy information.

In this special episode of Talking Head Pain, Joe speaks with Dr. Eyal Maoz Halevy, a Frontiers Award recipient at the American Headache Society's Scottsdale Headache Symposium. Dr. Eyal Maoz Halevy shares what he has found most impactful at the Symposium, and discusses his research on the role of physical activity as a vital sign (PAVS), revealing surprising insights about physical activity levels in migraine patients. Contact Our Hosts: Joe Coe, Director, Therapeutic Area Growth and Integration at GHLF: jcoe@ghlf.org Sarah Shaw, Senior Manager of BIPOC Community Outreach at GHLF: sshaw@ghlf.org A podcast series produced by Ben Blanc, Manager of Programs & Special Projects at GHLF. We want to hear what you think. Send your comments, or a video or audio clip of yourself, to podcasts@ghlf.org   Catch up on all our episodes on our website or on your favorite podcast channel.See omnystudio.com/listener for privacy information.

In this episode of Talking Head Pain, Joe Coe is joined by Kelly Gavigan Lorant, Director of Data Management and Analytics at GHLF, as they explore the findings from a recent patient-centered survey on migraine. Kelly also explains how GHLF's research registry, originally focused on rheumatic and musculoskeletal conditions, has expanded to include a broader spectrum of chronic diseases, including migraine. Discover the insights gained about migraine patients, their treatment paths, and how these can intersect with other chronic conditions. This episode provides a unique look into the evolving understanding and management of migraine within the chronic illness community. Among the highlights in this episode: 01:46: Kelly explains her position at GHLF and her work with various teams 02:49: “Our research registry is a place for people to engage in research and provide information about themselves, about their condition, about their disease activity, and disease journey. And all that information contributes to research,” says Kelly 03:02: Originally focused on rheumatic and musculoskeletal conditions, GHLF's research registry, formerly known as ArthritisPower, has now become PatientSpot, and has expanded to encompass a wider range of chronic diseases, including migraine. This expansion will allow GHLF to gather a more comprehensive understanding of how chronic conditions intersect and affect individuals 04:26: Kelly discusses the response rate of the survey and the intent to start migraine research within GHLF's research registry, PatientSpot 05:27: Kelly discusses the types of health care providers seen by survey respondents (migraine patients) and highlights the lack of care a significant portion of the respondents received for  their migraine attacks 06:39: Kelly shares more on the medications used by the survey participants, including over-the-counter medications and ice therapy 08:20: Joe and Kelly discuss potential future patient-centered research questions, exploring the intersection between chronic conditions like rheumatoid arthritis and migraine 09:17: Joe discusses the new initiative “PatientSpot” and its inclusive approach for patients with various chronic diseases, inviting research questions and participation You can send your questions to Joe Coe at jcoe@ghlf.org For more information, visit https://patientspot.org/ or download the PatientSpot app from your app store Contact Our Hosts: Joe Coe, Director, Therapeutic Area Growth and Integration at GHLF: jcoe@ghlf.org Sarah Shaw, Senior Manager of BIPOC Community Outreach at GHLF: sshaw@ghlf.org We want to hear what you think. Send your comments, or a video or audio clip of yourself, to podcasts@ghlf.org   Catch up on all our episodes on our website or on your favorite podcast channel.See omnystudio.com/listener for privacy information.

In this episode of Talking Head Pain, Sarah is joined by Kellie, a staunch advocate for migraine and traumatic brain injuries (TBI). Kellie walks us through her journey of living with a TBI from when she was in college to now with the critical work she is doing to provide migraine educational resources to employers and employees via Migraine at Work. Listen in as Kellie bravely opens up about her struggles with depression and migraine and her battle of overcoming the stigma attached to seeking help for mental health issues. Kellie also shares the significance of having a supportive network and the role of education and advocacy in reshaping the narrative about migraine attacks. Among the highlights in this episode: 01:58: Kellie recounts her worst migraine experience, highlighting the challenges of emergency care for migraine patients 03:28: Sarah and Kellie discuss the importance of having support from loved ones and their role in health care advocacy 04:24: Kellie describes her traumatic brain injury (TBI) and its impact, including her prior health history and the onset of her condition 07:03: Sarah addresses the reality of chronic illness and the need for accommodations to enable patients to achieve their goals 09:33: Kellie discusses the stigma associated with invisible illnesses and how it affects perceptions and treatment in society 10:10: Kellie shares about her involvement with the Migraine World Summit and Migraine at Work 12:56: Sarah relates her own migraine experiences at work and the commonality and benefits of openly discussing migraine issue 15:32: Kellie opens up about her struggle with depression after TBI, her resistance to acknowledging it, and the acceptance of treatment 18:54: Sarah and Kellie discuss the difficulty of seeking help for mental health, the stigma associated with it, and the importance of being gentle with oneself Contact Our Hosts: Joe Coe, Director, Therapeutic Area Growth and Integration at GHLF: jcoe@ghlf.org Sarah Shaw, Senior Manager of BIPOC Community Outreach at GHLF: sshaw@ghlf.org We want to hear what you think. Send your comments, or a video or audio clip of yourself, to podcasts@ghlf.org   Catch up on all our episodes on our website or on your favorite podcast channel.See omnystudio.com/listener for privacy information.

In this episode of Talking Head Pain, Sarah is joined by Avi, who lives with migraine and other chronic illnesses. Through his migraine journey, Avi shares with us the difficulty he and his family encountered trying to get diagnosed. Avi also breaks down the challenges he faces navigating the health care system as a trans man and non-binary person. He shares his experiences of being misgendered and deadnamed (when a transgender person is referred by their birth name after transitioning) in doctors' offices, highlighting the need for greater gender-affirming care. Among the highlights in this episode: 01:17: Sarah kicks off the episode by asking Avi what word he would use to describe his migraine attacks 01:58: Avi discuses the symptoms he experiences such as photophobia, aura, and nausea which people often don't associate with migraine attacks 02:43: Avi expresses the challenges and hopelessness his family faced when seeking medical help 03:12: Sarah discusses the difficulties of getting care when living with an invisible illness, especially for marginalized communities 04:34: Avi talks about his experiences as a trans man and non-binary person living with migraine attacks, and the challenges of navigating the health care system 05:38: Avi and Sarah delve into how testosterone affected Avi's migraine and the intersections of health care, gender, and chronic illness 08:00: Avi emphasizes the need for proper representation and training in health care settings, sharing personal experiences of bias 10:54: Sarah and Avi discuss the importance of representation in health care settings and how clinics can better support LGBTQIA+ patients 16:31: Sarah addresses the mental health aspects of living with chronic illnesses, emphasizing the importance of community 19:34: Sarah stresses the importance of representation and expresses hope for breaking generational boundaries Contact Our Hosts: Joe Coe, Director, Therapeutic Area Growth and Integration at GHLF: jcoe@ghlf.org Sarah Shaw, Senior Manager of BIPOC Community Outreach at GHLF: sshaw@ghlf.org We want to hear what you think. Send your comments, or a video or audio clip of yourself, to podcasts@ghlf.org  Catch up on all our episodes on our website or on your favorite podcast channel.See omnystudio.com/listener for privacy information.

In this week's episode of Talking Head Pain, Sarah is joined by Amanda, a migraine patient, advocate, stay-at-home parent, and educator living with multiple chronic health conditions. Join Sarah and Amanda as they dig into the ebbs and flows of being a parent living with chronic migraine, things we've learned from the migraine community, getting the confidence to advocate and speak up for ourselves, the importance of normalizing talks about your chronic illnesses and mental health with your family unit and finding time through self-care of dopamine searching through bird watching and memes. Among the highlights in this episode: 01:29: Sarah kicks off the episode by asking Amanda what word she would use to describe her migraine attacks 02:44: Amanda discusses the challenges of seeking care and advocating for herself, as well as the impact of normalization of pain in families 05:24: Amanda talks about the importance of self-care and seeking help for mental health and migraine 07:26: Amanda expresses her gratitude for the online migraine community and female doctors who educate and empower patients to advocate for themselves 10:25: Sarah and Amanda discuss the interconnectedness of anxiety, migraine, and mental health 16:24: Amanda shares the challenges of being a parent with chronic illness and mental health struggles, such as depression and anxiety, as well as the importance of having open and honest conversations with her child about her illnesses 18:39: Amanda and Sarah discuss the importance of self-care and finding pockets of joy and community, even when in pain 21:58: Amanda and Sarah discuss the importance of finding joy in the small things Contact Our Hosts: Joe Coe, Director, Therapeutic Area Growth and Integration at GHLF: jcoe@ghlf.org Sarah Shaw, Senior Manager of BIPOC Community Outreach at GHLF: sshaw@ghlf.org We want to hear what you think. Send your comments, or a video or audio clip of yourself, to TalkingHeadPain@GHLF.org. Catch up on all our episodes on our website or on your favorite podcast channel.See omnystudio.com/listener for privacy information.

In this week's episode of Talking Head Pain, Sarah is joined by Bernadette, a migraine advocate, digital creator, and somatic-informed certified educator who runs a chronic illness Instagram account called “chronicaccounts.” Bernadette is a former classroom teacher who now focuses on educating and supporting others to understand their life with migraine disease better. Join Sarah and Bernadette as they discuss Bernadette's journey navigating multiple misdiagnoses, leading to a delayed migraine diagnosis, pivoting from a well-loved career, and finding community. Hear how Bernadette's migraine diagnosis journey ultimately led her to patient advocacy. Among the highlights in this episode: 01:44: Sarah explains how the word ‘debilitating' describes migraine pain 04:00: Bernadette explains how she struggled with fatigue and trying to keep up with her peers 07:59: Sarah details the added stigma of being a woman living with a chronic illness 10:15: Sarah discusses how access can completely change one's chronic illness journey 12:26: Bernadette explains how understanding that migraine is a neurological condition and a disability earlier could have changed her whole life 14:38: Bernadette describes how the term ‘disability' came with relief 17:08: Bernadette explains how she was encouraged to take her entitled sick leave in the Netherlands 18:26: Bernadette details how she began her advocacy journey 20:02: Bernadette describes how the migraine stigma is so deep that we end up gaslighting ourselves 20:38: Sarah explains how despite living through the grief of leaving a teaching career, Bernadette is still teaching, just differently Contact Our Hosts: Joe Coe, Director, Therapeutic Area Growth and Integration at GHLF: jcoe@ghlf.org Sarah Shaw, Senior Manager of BIPOC Community Outreach at GHLF: sshaw@ghlf.org We want to hear what you think. Send your comments, or a video or audio clip of yourself, to TalkingHeadPain@GHLF.org. Catch up on all our episodes on our website or on your favorite podcast channel.See omnystudio.com/listener for privacy information.

In this week's episode of Talking Head Pain, Joe is joined by Dr. Nina Riggins, a board-certified neurologist who specializes in headache medicine and traumatic brain injury. The episode sheds lights on the intersection of migraine, weight management, and the impact of a new class of weight-loss drugs, GLP-1 agonists. Joe provides his own patient insight by sharing his personal experience with weight loss and migraine. Together, they also discuss the importance of a patient-specific plan and open communication between doctors and patients. Among the highlights in this episode: 01:47: Dr. Riggins discusses her excitement about the conversation around lifestyle, new medications, and new ways to treat migraine and headaches, along with the approach to weight loss 02:08: Joe talks about his own struggle with weight issues and the need for a more nuanced approach when addressing weight loss or gain in patients 03:47: Dr. Riggins explains the research she presented at the American Headache Society's meeting, focusing on GLP-1 agonists and their potential effects on people with migraine 05:10: Dr. Riggins delves into the multiple ways GLP-1 agonists work, including blood pressure control and blood sugar regulation 08:21: Joe shares the unexpected effects his weight-loss journey had on his migraine and overall health 11:45: Dr. Riggins elaborates on the changes that can occur when starting GLP-1 agonists 14:14: Joe emphasizes the importance of creating shared decisions between patients and providers for a successful treatment plan 16:20: Dr. Riggins discusses how medication may affect hunger and cravings and also elaborates on the role of energy in the migraine theory 18:56: Joe brings up how calorie deficits might initially make one feel tired 21:52: Joe and Dr. Nina discuss the Spoon Theory Contact Our Hosts: Joe Coe, Director, Therapeutic Area Growth and Integration at GHLF: jcoe@ghlf.org Sarah Shaw, Senior Manager of BIPOC Community Outreach at GHLF: sshaw@ghlf.org We want to hear what you think. Send your comments, or a video or audio clip of yourself, to TalkingHeadPain@GHLF.org. Catch up on all our episodes on our website or on your favorite podcast channel.See omnystudio.com/listener for privacy information.

In this week's episode of Talking Head Pain, Sarah is joined by Simar, a university student from Australia who lives with migraine and runs a migraine advocacy Instagram account called “studywithmigraine.” Join Sarah and Simar as they dive into navigating life as a university student living with migraine, the challenges of getting a migraine diagnosis as a woman of color, and the importance of finding doctors who take migraine and mental health seriously. Hear from Simar as she shares her lived experiences of coping with the isolation of chronic migraine and navigating accommodations in college. Among the highlights in this episode: 01:07: Sarah kicks off the episode by asking Simar what word she would use to describe her migraine attacks 01:23: Simar describes her ongoing struggle with refractory migraine 03:47: Simar opens up about her experience with a dismissive family doctor who doubted the severity of her condition 06:00: Simar details how she advocated for herself by seeking care from a more understanding and supportive health care professional 08:07: Sarah and Simar discuss the importance of finding health care providers who understand and take seriously both the physical and mental aspects of chronic illnesses 10:10: Simar discusses the isolation and misunderstanding she experienced in her social life as a university student 13:08: The importance of adapting to new ways of socializing and coping with the ongoing grief and overwhelming feeling associated with living with a chronic illness 17:40: Simar details the process of securing accommodations through university disability services 20:01: Sarah commends Simar for her advocacy efforts and positive impact on the migraine community Contact Our Hosts: Joe Coe, Director, Therapeutic Area Growth and Integration at GHLF: jcoe@ghlf.org Sarah Shaw, Senior Manager of BIPOC Community Outreach at GHLF: sshaw@ghlf.org We want to hear what you think. Send your comments, or a video or audio clip of yourself, to TalkingHeadPain@GHLF.org. Catch up on all our episodes on our website or on your favorite podcast channel.See omnystudio.com/listener for privacy information.

In this episode of Talking Head Pain, Sarah welcomes back guest Shruti Shivaramakrishnan, a migraine and mental health advocate, to explore the complex relationship between chronic migraine, mental health, and navigating health care systems. Join Sarah and Shruti as they discuss the profound impact of migraine on mental health, and shed a light on the need for continued dialogue and support in the migraine community. Among the highlights in this episode: 01:09: Shruti describes her pain levels of the day using the Stoplight Pain Scale 03:58: Shruti shares her personal struggles with mental health, migraine and feeling isolated 07:09: Sarah and Shruti discuss the power and importance of community for individuals living with chronic pain 09:31: Shruti shares her experience navigating the health care systems in India and Canada and the challenges she's encountered in both countries 13:13: Sarah highlights the importance of building a migraine toolkit and normalizing discussion around living with chronic pain and mental health issues 16:18: Sarah expresses appreciation for Shruti's representation of women of color in her comics about chronic pain and mental health, emphasizing the rarity of such representation 19:49: Shruti discusses her internal conflict over using color in her illustrations due to fears of discrimination and imposter syndrome 21:45: Sarah and Shruti explore the topic of generational trauma and how breaking this cycle of silent suffering is crucial to improve one's well being 23:34: Sarah asks Shruti about her self-care practices Contact Our Hosts: Joe Coe, Director, Therapeutic Area Growth and Integration at GHLF: jcoe@ghlf.org Sarah Shaw, Senior Manager of BIPOC Community Outreach at GHLF: sshaw@ghlf.org We want to hear what you think. Send your comments, or a video or audio clip of yourself, to TalkingHeadPain@GHLF.org. Catch up on all our episodes on our website or on your favorite podcast channel.See omnystudio.com/listener for privacy information.

In this special episode of Talking Head Pain, Joe speaks with Dr. Kristyn Pocock, a headache fellow, who shares her insightful research on the impact of breast size on headache. The discussion also delves into how personal experiences can inspire significant research, such as her own experience with migraine and breastfeeding, sparking her study into this correlation. Contact Our Hosts: Joe Coe, Director, Therapeutic Area Growth and Integration at GHLF: jcoe@ghlf.org Sarah Shaw, Senior Manager of BIPOC Community Outreach at GHLF: sshaw@ghlf.org We want to hear what you think. Send your comments, or a video or audio clip of yourself, to TalkingHeadPain@GHLF.org. Catch up on all our episodes on our website or on your favorite podcast channel.See omnystudio.com/listener for privacy information.

In this special episode of Talking Head Pain, Joe speaks with Dr. Barbara Nye, a Neurologist, Headache Specialist, and the Program Director for the Headache Fellowship at Atrium Health Wake Forest Baptist. Recorded live at the American Headache Society's (AHS) Annual Scientific Meeting in Austin, they discuss the latest trends and developments in headache research, including a focus on diversifying patient representation and understanding the unique experiences of different ethnicities and genders. Dr. Nye also sheds light on the AHS's ambitious plan for the next five to 10 years, with an aim to enhance headache diagnosis and management, possibly incorporating AI and genetic-based strategies. Contact Our Hosts: Joe Coe, Director, Therapeutic Area Growth and Integration at GHLF: jcoe@ghlf.org Sarah Shaw, Senior Manager of BIPOC Community Outreach at GHLF: sshaw@ghlf.org We want to hear what you think. Send your comments, or a video or audio clip of yourself, to TalkingHeadPain@GHLF.org. Catch up on all our episodes on our website or on your favorite podcast channel.See omnystudio.com/listener for privacy information.

In this special episode of Talking Head Pain, Joe speaks with Dr. Hida Nierenburg at the American Headache Society's meeting in Austin. Dr. Nierenburg sheds light on the transformative potential of recent therapies in managing head pain and migraine, along with her anticipation for future breakthroughs in treatment. She also provides insight into her role as a mentor for her first fellow. Contact Our Hosts: Joe Coe, Director, Therapeutic Area Growth and Integration at GHLF: jcoe@ghlf.org Sarah Shaw, Senior Manager of BIPOC Community Outreach at GHLF: sshaw@ghlf.org We want to hear what you think. Send your comments, or a video or audio clip of yourself, to TalkingHeadPain@GHLF.org. Catch up on all our episodes on our website or on your favorite podcast channel.See omnystudio.com/listener for privacy information.

In today's episode of Talking Head Pain, Joe delves into the personal journey of Marta Mrozek, a psychotherapy student who lives with migraine. Marta opens up about chronic migraine and her initial reluctance to accept her diagnosis. She also discusses the powerful realization about needing therapy and finding the right support system, which helped her navigate her condition. Join us, as we explore Marta's unique insights into reimagining her life in the face of chronic migraine and her journey toward advocacy. Among the highlights in this episode: 01:36: Marta recounts her worst migraine attack 03:25: People might be dealing with invisible struggles and pain even when they seem fine on the outside 04:10: Marta emphasizes the importance of listening to her body and seeking therapy sooner 05:33: Marta describes "performing migraine" as putting on a mask and trying to hide her pain to appear 'normal' and acceptable to others 07:06: Marta's journey to find the right therapist underscores the importance of patience and perseverance in the process of seeking help 09:49: Joe discusses the process of mourning, rediscovery, and redefining normalcy that many people with chronic diseases go through. 11:15: Marta explains her involvement with Migraine Canada and the importance of patient advocacy Contact Our Hosts: Joe Coe, Director, Therapeutic Area Growth and Integration at GHLF: jcoe@ghlf.org Sarah Shaw, Senior Manager of BIPOC Community Outreach at GHLF: sshaw@ghlf.org We want to hear what you think. Send your comments, or a video or audio clip of yourself, to TalkingHeadPain@GHLF.org. Catch up on all our episodes on our website or on your favorite podcast channel.See omnystudio.com/listener for privacy information.

On this episode of Talking Head Pain, Joe chats with Rabia Kiani, a lifelong migraine patient. Rabia reflects on how her migraine attacks and ability to manage them have been significantly influenced by her access to various treatments across different periods of her life and geographic locations. Rabia also discusses her experiences with medication overuse, or 'rebound' headaches, due to frequent use of over-the-counter medication to keep her migraine at bay. Among the highlights in this episode: 01:29: Rabia shares the intensity and fear of her worst migraine attack 02:53: Rabia describes the embarrassment she felt as a child suffering from migraine, and her attempts to hide her condition to blend in with her peers 04:28: Joe empathizes with Rabia's struggle and the internal conflict she experiences due to societal stigma around invisible diseases 05:42: Rabia details her journey through different stages of her life, with varying levels of access to treatment and health care, and the significant impact on her quality of life 08:53: Rabia expresses her frustration about the lack of access to some migraine treatments in Canada after experiencing their benefits abroad 11:54: Rabia reflects on her past overuse of over-the-counter medications to manage and hide her migraine 09:04: More on medication overuse headache with our guest Dr. Alan Rapoport in a past episode: https://omny.fm/shows/talking-head-pain/medication-overuse-headache-a-conversation-with-dr Contact Our Hosts: Joe Coe, Director, Therapeutic Area Growth and Integration at GHLF: jcoe@ghlf.org Sarah Shaw, Senior Manager of BIPOC Community Outreach at GHLF: sshaw@ghlf.org We want to hear what you think. Send your comments, or a video or audio clip of yourself, to TalkingHeadPain@GHLF.org. Catch up on all our episodes on our website or on your favorite podcast channel.See omnystudio.com/listener for privacy information.

On this episode of Talking Head Pain, Joe is joined by Genevieve Pharand, a lawyer and a member of the Board of Directors of Migraine Quebec. Genevieve discusses her journey from her first migraine attack at the age of 10 to the debilitating chronic migraines she began to experience in her 40s. Genevieve discusses how her journey led her to become an advocate for fellow migraine sufferers. Tune in to listen to Genevieve's testament to resilience and hope amidst the challenges of living with chronic pain. Among the highlights in this episode: 01:24: Genevieve shares the experience of her first major migraine attack 02:31: Genevieve recounts the transition from episodic to chronic migraine 03:37: Joe asks about the stages of grief Genevieve went through due to her chronic migraine, shedding light on the emotional toll of the condition 05:05: Genevieve discusses her experiences with migraine treatment in Canada 06:05: How Genevieve's advocacy work with Migraine Quebec became a source of purpose after her chronic migraine began to affect her ability to contribute to society 08:04: Joe highlights the importance of pacing and finding personal purpose when living with a chronic illness 09:04: Genevieve emphasizes the importance of listening to one's body and taking care of oneself in order to manage chronic illnesses effectively Contact Our Hosts: Joe Coe, Director, Therapeutic Area Growth and Integration at GHLF: jcoe@ghlf.org Sarah Shaw, Senior Manager of BIPOC Community Outreach at GHLF: sshaw@ghlf.org We want to hear what you think. Send your comments, or a video or audio clip of yourself, to TalkingHeadPain@GHLF.org. Catch up on all our episodes on our website or on your favorite podcast channel.See omnystudio.com/listener for privacy information.

On this episode of Talking Head Pain, Sarah is joined by Judith Klausner, a migraine patient and an artist from Massachusetts with a love for small, intricate, and overlooked things. Judith's experience of invisible disability and chronic pain plays an integral role in how she views the world and creates art. Her work has been featured in Harper's magazine, Reader's Digest, the Huffington Post, and NPR.  Join Sarah and Judith as they discuss the inspiration for her children's book on migraine attacks, Noah the Narwhal: A Tale of Downs and Ups as well as creating art with chronic and mental illnesses, and the importance of rest as a form of productivity. Among the highlights in this episode: 01:00: Sarah kicks off the episode by asking Judith what word she would use to describe her migraine attacks 01:48: Judith shares about the complexity and various aspects of migraine and recounts her worst migraine attack 02:58: Sarah emphasizes the importance of discussing how migraine attacks can impact significant life events, like a wedding 05:12: Judith shares her journey of finding a supportive community of migraine patients on Twitter and how it led her to write a children's book 08:19: Judith explains why she chose a narwhal as the protagonist of her book 09:32: Judith discusses how her art is influenced by her chronic condition, creating visual representations of her migraine attacks and turning her medical ephemera into pieces of art 11:59: Sarah and Judith discuss the importance of recognizing and celebrating the chronic illness community and how strength and beauty is often overlooked in the chronic illness community 14:14: Sarah asks what advice Judith would give to artists who have a chronic condition and who are just beginning their artistic journey 17:39: Judith shares her best self-care tips Contact Our Hosts: Joe Coe, Director, Therapeutic Area Growth and Integration at GHLF: jcoe@ghlf.org Sarah Shaw, Senior Manager of BIPOC Community Outreach at GHLF: sshaw@ghlf.org We want to hear what you think. Send your comments, or a video or audio clip of yourself, to TalkingHeadPain@GHLF.org. Catch up on all our episodes on our website or on your favorite podcast channel.See omnystudio.com/listener for privacy information.

On today's episode of Talking Head Pain, Sarah is joined by chronic migraine patient D'Sena' and Bailey, her service dog, who helps her with her chronic illnesses. D'Sena' is also a single mother of a child with migraine attacks, and she shares with us how she supports him during these episodes. Join Sarah and D'Sena' as they dig into topics such as caregiving, parenting, advocacy for children, service dogs, health insurance, and discrimination related to chronic migraine and health care for women of color.  Among the highlights in this episode: 01:14: Sarah kicks off the episode by asking D'Sena' what word she would use to describe her migraine attacks 02:21: D'Sena' shares her experience as a mom with chronic migraines while caring for her son, who also experiences migraine attacks 03:52: D'Sena' and Sarah discuss the challenges faced by parents of children with migraines and the importance of recognizing their specific needs 05:57: D'Sena' discusses the importance of recognizing migraine symptoms in children and helping them advocate for themselves 07:27: Sarah and D'Sena' talk about the different types of migraine attacks and the importance of early diagnosis and treatment 07:56: D'Sena' shares the challenges of not being believed by health care professionals 09:56: The struggle of finding the right balance of medications and working through pain for people with chronic migraines 10:48: D'Sena' shares how her experience with the migraine community and participating in events like Headache on the Hill have helped her feel more supported and informed 12:18: D'Sena' discusses the challenges of navigating the health care system and insurance companies in order to get proper migraine care Contact Our Hosts: Joe Coe, Director, Therapeutic Area Growth and Integration at GHLF: jcoe@ghlf.org Sarah Shaw, Senior Manager of BIPOC Community Outreach at GHLF: sshaw@ghlf.org We want to hear what you think. Send your comments, or a video or audio clip of yourself, to TalkingHeadPain@GHLF.org. Catch up on all our episodes on our website or on your favorite podcast channel.See omnystudio.com/listener for privacy information.

In this episode of Talking Head Pain, Sarah is joined by Kate Schwab, LCSW, a somatic therapist who also happens to live with migraine. Kate uses a client-centered approach to therapy, tailoring her treatment to each individual's unique needs and goals. Kate integrates evidence-based techniques such as cognitive-behavioral therapy (CBT), mindfulness, and psychodynamic therapy to help her clients achieve lasting change. Join Sarah and Kate as they have a real conversation about how migraine and mental health intersect, what drew her to become a therapist, the stigma around speaking up about mental health and pain, and the importance of having an inclusive therapist that creates a safe space for those living with chronic pain like migraine.  Among the highlights in this episode: 00:58: Sarah kicks off the episode by asking Kate what word she would use to describe her migraine attacks 02:26: Kate recalls her worst migraine attack, which coincidentally was also her first one 04:50: Kate describes her allergic reaction to an anti-nausea medication she experienced while being treated for migraine at the ER 07:08: Sarah and Kate discuss the intricate connection between migraine and mental health and how patients should be considered experts on their own bodies and experiences 09:13: Kate explains her journey to becoming a migraine therapist and her emphasis on connection, disconnection, and safety in therapy 12:27: Sarah highlights the importance of having a therapist who understands and validates patients with chronic pain 17:34: Kate emphasizes the importance of building relief and connection in therapy, as people with migraine often don't receive adequate support or understanding from others Contact Our Hosts: Joe Coe, Director, Therapeutic Area Growth and Integration at GHLF: jcoe@ghlf.org Sarah Shaw, Senior Manager of BIPOC Community Outreach at GHLF: sshaw@ghlf.org We want to hear what you think. Send your comments, or a video or audio clip of yourself, to TalkingHeadPain@GHLF.org. Catch up on all our episodes on our website or on your favorite podcast channel.See omnystudio.com/listener for privacy information.

In this special episode of Talking Head Pain, Joe is joined by his colleague Sarah Shaw, Senior Manager of BIPOC Community Outreach at the Global Healthy Living Foundation, to discuss an exciting update for Talking Head Pain: Sarah will be joining the podcast as a co-host. Join Joe and Sarah as they discuss the podcast's new direction, and how they will continue to uplift the voices of the migraine community that are not always represented. Among the highlights in this episode: 00:45: Joe kicks off the episode by sharing that Sarah will now be co-hosting Talking Head Pain 00:59: “We took some time to think about how we can better serve our community, and one of the ideas that we came up with was making it bigger than me being the singular host,” says Joe 01:34: “I feel really honored to help pass the mic, theoretically, hypothetically, to more and more patients in the migraine community,” says Sarah 02:10: Sarah discusses the direction she will be taking with the episodes she will host on Talking Head Pain 03:50: Joe explains that he will focus his interviews on health care providers, researchers, and other medical professionals and provide updates from the medical conferences he regularly attends 04:26: Sarah plans to speak with patients and to pass the mic to underserved communities that typically are not as well heard, such as the BIPOC and LGBTQ communities 04:42: If you want your story to be featured on Talking Head Pain, you can send an email to our hosts at: jcoe@ghlf.org and sshaw@ghlf.org Contact Our Hosts: Joe Coe, Director, Therapeutic Area Growth and Integration at GHLF: jcoe@ghlf.org Sarah Shaw, Senior Manager of BIPOC Community Outreach at GHLF: sshaw@ghlf.org We want to hear what you think. Send your comments, or a video or audio clip of yourself, to TalkingHeadPain@GHLF.org. Catch up on all our episodes on our website or on your favorite podcast channel.See omnystudio.com/listener for privacy information.

In this episode of Talking Head Pain, Joe is joined by Dr. Nina Riggins, Director of the Headache and Traumatic Brain Injury Center at UC San Diego Health, a Neurologist, and Headache Specialist. By applying her passions for education and advocacy, Dr. Riggins is very active in the headache community and has participated in Neurology on the Hill as well as Headache on the Hill. Join Joe and Dr. Riggins as they discuss her work providing migraine education to primary care doctors as well as her education and advocacy efforts aimed at bolstering awareness so patients can reach earlier diagnosis and achieve better management of their symptoms. Dr. Riggins also shares the latest on migraine treatment options and research advancements. Among the highlights in this episode: 01:25: Dr. Riggins kicks off the episode by sharing her excitement with her work in the field of headache medicine 02:17: Dr. Riggins describes her work for the American Headache Society in providing education directly from headache specialists to primary care doctors 04:43: “It was amazing to me to see that Headache on the Hill this year did address pediatrics [on] kids issues with migraine… proposing [a] letter to the Department of Education to support our kids when they need extra resources in school to be successful in the long run, because migraine is not just a headache, it's a whole disorder of brain networks,” says Dr. Riggins 07:06: The challenges migraine patients face in terms of advocacy and access 09:42: Joe and Dr. Riggins discuss unmet needs for researchers, including biomarkers and precision medicine 12:08: The importance of pursuing research for long COVID, especially in the area of headache medicine 13:07: The link between autonomic dysfunction and migraine 13:42: “Some people can have these multiple headache disorders, migraine and cluster, even hoarse voice during attacks and it's because [of] this autonomic neurosystem,” says Dr. Riggins Contact Our Host: Joe Coe, Director, Therapeutic Area Growth and Integration at GHLF: jcoe@ghlf.org We want to hear what you think. Send your comments, or a video or audio clip of yourself, to TalkingHeadPain@GHLF.org. Catch up on all our episodes on our website or on your favorite podcast channel.See omnystudio.com/listener for privacy information.

This week on Talking Head Pain, Joe is joined by Susan McManus, a migraine patient and advocate who was diagnosed 20 years ago. Describing herself as a “highly functioning migraineur” when her kids were still at school, Susan's life was turned upside down after her condition became chronic. Join Joe and Susan as they discuss how she navigated the shift to chronic migraine, her advocacy journey, her involvement with Headache on the Hill, and what she's learned in trying to remain active while surrounding herself with a great team of doctors. Among the highlights in this episode: 01:13: Joe and Susan McManus kick off the episode by each sharing an analogy about how fatigue feels 02:07: Susan shares about getting diagnosed 20 years ago and how she was able to manage her condition back then while staying busy 02:54: Joe asks Susan how her family reacted as her condition shifted from episodic to chronic 04:18: Susan discusses her advocacy journey and what led her to participate in her first Headache on the Hill in 2020  05:19: Joe shares he was recently a speaker at the Migraine World Summit. You can watch his interview via the link below: https://migraineworldsummit.com/talk/lgtbq-migraine-care-disparities/ 06:13: Susan shares why she doesn't want to think about her migraine all the time and how she is making it a point to remain active 07:25: “I'm just going to pretend I don't have migraine, and I'm going to try to get out of the house and do something every day,” says Susan 08:58: Susan discusses how she's tried to push through her symptoms and the reality of living with chronic migraine as well as the impact on her personal and professional life 11:27: “I've created a team of doctors, and they listened to me... So that's so important because I think a lot of doctors don't listen to the patient. And that's exhausting being your own advocate,” says Susan Contact Our Host: Joe Coe, Director, Therapeutic Area Growth and Integration at GHLF: jcoe@ghlf.org We want to hear what you think. Send your comments, or a video or audio clip of yourself, to TalkingHeadPain@GHLF.org. Catch up on all our episodes on our website or on your favorite podcast channel.See omnystudio.com/listener for privacy information.

On today's episode of Talking Head Pain, Joe is joined by chronic migraine and long COVID patient Marnie Russ, Program Administrator for the National Kitten College Program (NKCP). Through her work at the Kitten program and speaking at migraine events like Headache on the Hill, Marnie has had a positive impact on both humans and our feline friends. Join Joe and Marnie as they discuss caring for kittens, how migraine impacts relationships, and how COVID can change one's headache.   Among the highlights in this episode: 00:32- Joe kicks off the episode by introducing today's guest, Marnie Russ, a chronic migraine and long COVID patient and the Program Administrator of the National Kitten College Program   03:15- Marnie discusses her background working with nonprofits   03:57- Joe asks Marnie what lead her to speak at the Headache and Migraine Policy Forum to talk about migraine and long COVID   05:46- Marnie tells Joe how her romantic relationships changed when she developed chronic migraine   08:43- Joe and Marnie discuss what it means to not have the luxury to fail   10:24- Marnie talks about how COVID changed her health   13:19- During her briefing about migraine and COVID, Marnie talked about the fear and uncertainty surrounding migraine after having COVID   16:21- Marnie tells Joe about how she manages her triggers Contact Our Host:   Joe Coe, Director, Education and Digital Strategy at GHLF: jcoe@ghlf.org   We want to hear what you think. Send your comments, or a video or audio clip of yourself, to TalkingHeadPain@GHLF.org.   Catch up on all our episodes on our website or on your favorite podcast channel.See omnystudio.com/listener for privacy information.

On this week's episode of Talking Head Pain, Joe is joined by Wayne Anderson, DO, FAHS, FAAN, a neurologist in San Francisco, CA. In addition to being a provider, Dr. Anderson is on the Board of Directors of the American Academy of Neurology and takes part in advocacy events like Neurology on the Hill, so that he can be a part of a chorus of healthcare providers trying to improve the lives of those living with neurological disorders.    Join Joe and Dr. Anderson as they discuss Neurology on the Hill, the challenges facing providers, and how providers can become advocates.   Among the highlights in this episode: 00:22- Joe kicks off today's episode by introducing Dr. Wayne Anderson, a neurologist and advocate, and asks Dr. Anderson about his involvement in Neurology on the Hill   01:50- Dr. Anderson talks about the issues that Neurology on the Hill has advocated for in the past   03:18- Joe asks about the impact that Step Therapy can have on the patient experience and journey   04:41- Dr. Anderson discuss the impact Prior Authorization has on him as a physician and the reforms that may be coming   09:50- Joe asks Dr. Anderson if he thought he would be involved in policy when he started medical school   10:33- Dr. Anderson shares what excites him about the future of neurology   13:58- Dr. Anderson shares ways providers can get involved in advocacySee omnystudio.com/listener for privacy information.

This week on Talking Head Pain, Joe is joined by Laura Laureta, a migraine patient and creator of Lit Up My Mind, a website dedicated to making resources about migraine and traumatic brain injury accessible to the community. Through this work, Laura turns the pain she's experienced into hope for others. Join Joe and Laura as they discuss Lit Up My Mind, being written off by doctors, and the fun of virtual game nights. Among the highlights in this episode: 00:49- Joe kicks off the episode by introducing today's guest, Laura Laureta, creator of Lit Up My Mind 01:25- Joe asks Laura about the process of getting a traumatic brain injury (TBI) and migraine diagnosis 03:18- Laura tells Joe about the feeling of validation she got when she went to a provider that didn't write her off 04:18- Laura shares advice for those who are being written off by the medical system 05:16- Laura tells the story of her worst migraine attack 07:09- Joe and Laura talk about the beginnings of Lit Up My Mind and what inspired Laura to create a free resource 09:08- With Talking Head Pain being a resource featured on Lit Up My Mind, Laura tells Joe what connected her to the podcast 10:45- With the prevalence of virtual meet ups that came about from the pandemic, Laura started Brain Busters, a virtual game night for people in the TBI and migraine communities 14:01- Joe asks Laura about what it feels like to find the right treatment plan 16:25- Laura shares what she wishes people who don't live with migraine would know about living with the disease Contact Our Host: Joe Coe, Director, Education and Digital Strategy at GHLF: jcoe@ghlf.org We want to hear what you think. Send your comments, or a video or audio clip of yourself, to TalkingHeadPain@GHLF.org. Catch up on all our episodes on our website or on your favorite podcast channel. See omnystudio.com/listener for privacy information.See omnystudio.com/listener for privacy information.

Last week, Joe attended Headache on the Hill, an advocacy event which brings migraine patients and providers to Capital Hill to share their stories with elected officials. Joe was able to meet up with Natalie Copeland, migraine patient/advocate, and Dr. Stephanie Nahas, a neurologist/advocate, who brought their stories and expertise to the nation's capital. Join Joe, Natalie, and Dr. Nahas as they discuss their goals for the 2023 Headache on the Hill. Among the highlights in this episode: 00:24- Joe introduces Natalie Copeland, a migraine patient from Vermont, who tells Joe about the importance of sharing her story at Headache on the Hill 00:54- Natalie shares her connection to migraine 01:16- When meeting with lawmakers, Natalie wants them to know that migraine is more than a headache and affects the way she lives her life 01:50- Joe introduces neurologist and migraine advocate, Dr. Stephanie Nahas 02:07- Dr. Nahas talks about the importance of neurologists and providers to attend events like Headache on the Hill 02:56- As advocates and neurologists meet with lawmakers, Dr. Nahas shares what she hopes the elected officials will take away from their conversations Contact Our Host: Joe Coe, Director, Education and Digital Strategy at GHLF: jcoe@ghlf.org We want to hear what you think. Send your comments, or a video or audio clip of yourself, to TalkingHeadPain@GHLF.org. Catch up on all our episodes on our website or on your favorite podcast channel. See omnystudio.com/listener for privacy information.See omnystudio.com/listener for privacy information.

Advocating Online and on the Hill: A Conversation with Kelsey Feng Today on Talking Head Pain, Joe is joined by Kelsey Feng, a migraine advocate and creator of the social media page, Kelsey's Migraine. Through their work online and advocacy efforts like Headache on the Hill, Kelsey aims to end the stigma of migraine within the LGBTQ+ and East Asian communities. Join Joe and Kelsey as they discuss Headache on the Hill, representation on social media, and the importance of increased research efforts. Among the highlights in this episode: 01:14- Today's guest, Kelsey Feng, kicks off the episode by telling Joe about the worst migraine attack they've experienced 03:11- Joe asks Kelsey about how they talk about pain and chronic disease within the Asian community 05:07- Kelsey shares how when they see chronic disease represented in social media, they do not feel represented 06:33- With Kelsey's first Headache on the Hill approaching, Joe asks them why it is important to participate in migraine advocacy 08:33- Kelsey speaks to the importance of attending Headache on the Hill as a member of both the BIPOC and LGBTQ+ communities 10:56- Kelsey talks about the need for research on migraine within the East Asian community Contact Our Host: Joe Coe, Director, Education and Digital Strategy at GHLF: jcoe@ghlf.org We want to hear what you think. Send your comments, or a video or audio clip of yourself, to TalkingHeadPain@GHLF.org. Catch up on all our episodes on our website or on your favorite podcast channel. See omnystudio.com/listener for privacy information.See omnystudio.com/listener for privacy information.

In this episode of Talking Head Pain, Joe is joined by Dr. Jono Taves, a physical therapist specializing in the treatment of headache and migraine at the Novera Headache Center. Through his work at the center, his TikTok videos, and podcast, Dr. Taves inspires and educates the migraine community. Join Joe and Dr. Taves as they discuss the neck's connection to migraine, advice for those nervous about seeing a physical therapist, and easy stretches to try at home Among the highlights in this episode: 00:23- Joe introduces his guest, Dr. Jono Taves, a physical therapist specializing in migraine and headache treatment options 01:12- Dr. Taves tells Joe about the connection between migraine and the neck 04:54- Joe and Dr. Taves walk through a stretch for patients who are feeling tension in the neck 08:24- Strength training is a big part of Joe's fitness routine, so he asks Dr. Taves for his thoughts on strength training and how those with migraine can work out without triggering an attack 12:56- Going to a physical therapist can be a stressful experience for migraine patients, so Dr. Taves gives some advice to those feeling uneasy 17:35- Dr. Taves shares what he's learned while creating content for TikTok as well as his most popular piece  20:40- As host of The Headache Doctor Podcast, Dr. Taves tells Joe about the most interesting episode he has produced 23:31- Dr. Taves speaks to the audience about giving permission to get care for their migraine Contact Our Host: Joe Coe, Director, Education and Digital Strategy at GHLF: jcoe@ghlf.org We want to hear what you think. Send your comments, or a video or audio clip of yourself, to TalkingHeadPain@GHLF.org. Catch up on all our episodes on our website or on your favorite podcast channel.See omnystudio.com/listener for privacy information.

Today on Talking Head Pain, Joe is joined by Alan Kaplan, Founder of NDPHaware. Alan lives with New Daily Persistent Headache (NDPH) and started the organization to build community and advance research. Join Joe and Alan as they discuss NDHP, online support groups, and the emergence of psychedelics. Among the highlights in this episode: 01:20- Joe kicks off the episode by asking Alan Kaplan to tell the audience about New Daily Persistent Headache, NDPH, and the symptoms surrounding it 03:03- Alan shares how NDPH has affected his day-to-day life 03:54- Joe and Alan discuss the lack of information surrounding the origins of NDPH 04:39- Joe asks about the prevalence of NDPH in men 06:06- Alan talks about finding online support groups 07:18- Alan tells the story of how he decided to start NDPHaware.org 09:34- Joe and Alan discuss the emergence of psychedelics in Alan's toolkit 11:09- Alan shares what starting a non-profit has taught him Contact Our Host: Joe Coe, Director, Education and Digital Strategy at GHLF: jcoe@ghlf.org We want to hear what you think. Send your comments, or a video or audio clip of yourself, to TalkingHeadPain@GHLF.org. Catch up on all our episodes on our website or on your favorite podcast channel.    See omnystudio.com/listener for privacy information.

On today's episode of Talking Head Pain, Joe is joined by Alicia Wolf, creator of the Instagram account, “The Dizzy Cook” and author of “The Mediterranean Migraine Diet: A Science-Based Roadmap to Control Symptoms and Transform Brain Health.” Join Joe and Alicia in part two of their interview where they discuss the recipe for happiness, international cuisine, and meals with special meaning. Among the highlights in this episode: 01:18- Joe kicks off part two of his interview with Alicia by asking her to share her recipe for happiness 05:42- Alicia talks about the meals and recipes that are special to her 10:56- Joe asks Alicia what region she's traveled to has had her favorite cuisine Contact Our Host: Joe Coe, Director, Education and Digital Strategy at GHLF: jcoe@ghlf.org We want to hear what you think. Send your comments, or a video or audio clip of yourself, to TalkingHeadPain@GHLF.org. Catch up on all our episodes on our website or on your favorite podcast channel. To receive headache/migraine related resources, giveaways, and latest episode releases, text the word "Headache" to 1-845-285-1563 to sign up.See omnystudio.com/listener for privacy information.