Podcasts about mayer rokitansky k

Mayer-Rokitansky-Küster-Hauser (MRKH) is not only tricky to spell, it's also more common than you think! MRKH syndrome affects around 1 in 4,500 female/AFAB folk. We are incredibly lucky to have guest host Lauren on the pod sharing expertise, hot tips, advocacy, and insider knowledge. Tune in!  Key resources: https://www.ogmagazine.org.au/19/3-19/primary-amenorrhoea/ https://www.rch.org.au/rch_gynaecology/young-women-and-parents-and-carers/RCH_MRKH_information/

Molly McGlynn is a writer and director who was born in Montreal to Irish parents and grew up in the United States.  Mary Goes Round, premiered at the Toronto International Film Festival in September 2017 and has screened at dozens of film festivals and won multiple awards, including the Panavision Independent Cinema Award at the Santa Barbara Film Festival, Best Feature Film at the Vail Film Festival and Best Narrative Feature at the Annapolis Film Festival.    Selected television credits include Workin' Moms, The Wonder Years, Grace and Frankie and The Big Door Prize. Additionally, she was the producing director on Season 2 of Bless This Mess.   Her second feature film, Fitting In, (fka Bloody Hell), starring Maddie Ziegler and Emily Hampshire, had its World Premiere at SXSW in the Narrative Spotlight section in March 2023. Its International Premiere was at the prestigious Deauville American Film Festival and its Canadian premiere was at the Toronto International Film Festival. It won Best Canadian Feature Film at the Vancouver International Film Festival and was nominated for Outstanding Directorial Achievement in Feature Film by the Directors Guild of Canada.   She also hosts the podcast Hello, My Mom is Dead, an honest and authentic look into grief and loss.   Mayer Rokitansky Küster Hauser (MRKH) syndrome is a condition affecting approximately 1 in 5000 female births and leading to the absence or underdevelopment of the uterus, cervix and vagina. There are 2 types of MRKH, Type 1 as typified above and Type 2, in addition to the above may also affect the kidneys, bones, heart or hearing. Find out more and get support here www.mrkhconnect.org   Want to watch: YouTube Meisterkhan Pod (Please Subscribe)

In this week's episode, I'm joined by Andreia Trigo @andreiatrigorn, a fellow nurse and the CEO and founder of Enhanced Fertility. We're talking all about Mayer-Rokitansky-Küster-Hauser also known as MRKH. Yep, you can be forgiven for not knowing much, if anything about this rare condition that severely impacts your fertility potential. Essentially if you have MRKH you're born without a womb. Can you imagine how devastating that diagnosis would be and how it would impact you? Imagine finding this all out as a teenager and then in later years realising how this would impact your ability to create a family! Andreia talks about her diagnosis, what she experienced to even get diagnosed in the first place, the accessibility for those who are diagnosed with MRKH, and the first UK uterine transplant.Andreia's fertility journey began when she was 17. She was concerned that she hadn't yet had her first period. After being told to come back after a year, she eventually had tests and scans done and one of the scans reported that a uterus was seen on the scan. It wasn't until later that it turned out to not be the case and Andreia had been incorrectly diagnosed.A year later, when Andreia was 18, she was diagnosed with MRKH. The process that she went through to get that diagnosis took just over 3 years. This involved invasive and painful investigations and procedures to reach a diagnosis. Something that still haunts Andreia to this day. We talked about whether there has been a change in the way that MRKH is diagnosed in the UK. Andreia tells us how it has and now there is a lot more support and tests that are available to be able to effectively diagnose MRKH promptly. Incredibly, 1 in 5000 women are diagnosed with MRKH. Later on, we talked about the first UK uterine transplant and what this means for women like Andreia. Andreia is passionate about improving access and decreasing the time to diagnosis and helps women find their way through diagnosis and the next steps. Andreia's advice to anyone on a fertility journey is, if you feel there is something wrong be persistent and feel empowered to investigate why.Find out more about Andreia at - https://efp.clinic/Follow @andreiatrigorn on InstagramFollow @YourFertilityNurse on InstagramFollow @TheFertilityPodcast on Instagram

Ready for an Unforgettable Journey of Strength and Resilience?We're kicking off season 3 with a conversation with Ally Hensley, a woman who was born with a rare condition called Mayer-Rokitansky-Küster-Hauser (MRKH) Syndrome, resulting in the absence of a vagina and reproductive organs. Our conversation follows her relationship with her body before and after diagnosis, and talks about her personal healing journey to unlearning the feelings of shame she came to feel surrounding sex and sexuality.Today, Ally is an author, speaker, writer, and advocate for women's reproductive health.Show Notes[00:00:09] Introduction by Michelle:Michelle opens the episode by posing a thought-provoking scenario about adolescence, expectations, and the shock of discovering one's body is different, setting the stage for Ally's story.[00:00:30] Ally's Diagnosis:Ally Hensley recounts her personal experience with MRKH, discovered during her teenage years when she did not get her period, leading to a diagnosis that would forever change her perspective on womanhood and belonging.[00:01:37] Emotional Impact and Isolation:Ally discusses the emotional turmoil of growing up with MRKH, the societal pressures of womanhood, and the unique challenges of navigating adolescence with a condition few understand.[00:02:08] Humor and Societal Norms:Despite the challenges, Ally recalls moments of humor and the lengths she went to fit into societal norms, highlighting the complexity of identity and the desire to belong.[00:02:38] Disclosure and Shame:Ally talks about the internal battle with disclosing her condition, confronting shame, and finding the courage to speak her truth.[00:03:37] Acceptance and Community:The conversation shifts to Ally's path towards acceptance, the power of community, advocacy, and the importance of unlearning shame associated with MRKH.[00:05:00] Sexual Education and Discovery:Ally discusses the shortcomings of sex education, her personal exploration of sexuality, and the journey of creating her own vagina, reflecting on societal expectations and the pursuit of "typical".[00:09:14] Medical Journey:Ally shares her experience navigating the medical world at 16, the options presented for treatment, and the impact of her condition on family dynamics and personal growth.[00:12:46] Stigma and Silence:The discussion delves into the societal stigma surrounding MRKH, the importance of open dialogue, and the ongoing struggle against shame and secrecy.[00:17:49] Womanhood and Identity:Ally reflects on the concepts of womanhood, motherhood, and the societal pressures that define female identity, emphasizing the need for a broader, more inclusive understanding.[00:24:28] Reconnecting with the Body:Ally discusses the complex relationship between pain, pleasure, and body disconnect, sharing her journey towards healing and reconnecting with her body and sexuality.[00:32:06] Overcoming Shame:The episode concludes with Ally offering ideas for others struggling with shame, emphasizing the importance of community, self-acceptance, and challenging societal norms.Closing Remarks by Michelle:Michelle wraps up the episode, highlighting the significance of Ally's story in challenging silence and shame around sex and identity, and directs listeners to Ally's podcast, "Stigma Shakers," for more insights and inspiration.Where to Find Ally:Instagram: @Ally_HensleyWebsite: https://allyhensley.com/Podcast: Stigma ShakersLinktree: https://linktr.ee/allyhensley

Imagine a world where your very identity is challenged by your body—this is where Rima Zigaitis reshapes the narrative. In today's episode, the boys sit down with Rima Zigaitis, a beacon of hope and empowerment for women grappling with life-altering diagnoses. Founder of Sumaavi Coaching, Rima's own journey through the maze of Mayer-Rokitansky-Küster-Hauser (MRKH) syndrome—a condition that left her without a uterus, cervix, or vagina—fuels her mission. Beyond the physical, MRKH challenged Rima's very identity as a woman, a journey she candidly shares with the fellas. From misdiagnoses and surgeries to founding Sumaavi and forging partnerships with women's health nonprofits, Rima's tale is one of resilience, acceptance, and transformation. Delve into the nuances of MRKH, the emotional whirlwind of living with it, and how Rima is changing the narrative on women's health. This episode is a raw exploration of the challenges and triumphs faced by women like Rima, and a testament to the strength found in vulnerability. Join the post-episode conversation over on Discord! https://discord.gg/expeUDN"

Imagine a world where your very identity is challenged by your body—this is where Rima Zigaitis reshapes the narrative. In today's episode, the boys sit down with Rima Zigaitis, a beacon of hope and empowerment for women grappling with life-altering diagnoses. Founder of Sumaavi Coaching, Rima's own journey through the maze of Mayer-Rokitansky-Küster-Hauser (MRKH) syndrome—a condition that left her without a uterus, cervix, or vagina—fuels her mission. Beyond the physical, MRKH challenged Rima's very identity as a woman, a journey she candidly shares with the fellas. From misdiagnoses and surgeries to founding Sumaavi and forging partnerships with women's health nonprofits, Rima's tale is one of resilience, acceptance, and transformation. Delve into the nuances of MRKH, the emotional whirlwind of living with it, and how Rima is changing the narrative on women's health. This episode is a raw exploration of the challenges and triumphs faced by women like Rima, and a testament to the strength found in vulnerability. Join the post-episode conversation over on Discord! https://discord.gg/expeUDN"

Helloooo, and welcome to Season 8 of Mads World! You're about to listen to Ways of Womanhood: Mayer-Rokitansky-Küster-Hauser syndrome with Ally Hensley!This week I am joined by author, speaker, ghost-writer, content creator and stigma shaker of the best kind, Ally Hensley. As a teenager, Ally Hensley discovered that she had been born with a rare condition, Mayer-Rokitansky-Küster-Hauser syndrome (MRKH), resulting in the absence of a womb and a vagina. Discovering her infertility just months after her sweet sixteen, Ally had a job to do: create a vagina from scratch. What followed, was a life of destruction, abuse and, as she says, a societal head-tilt asking, “do you look like Barbie down there?”After recently writing her debut memoir about sexual hang-ups, bad date blunders, and relearning what school never taught her, she decided to smoke out the shame, by telling her story to the world.Now, Ally is on a mission to debunk the myths around what it means to be a woman.In this episode, we discuss what MRKH is, the options presented to those with the syndrome, the feelings that one might experience after diagnosis, MRKH and fertility, the importance of options and what it can mean to be a woman.  Click here to find Mads World social media, submit questions to the website, or buy me a coffee. Cover Art: VeredienMusic: The.Jones.Project_93 Get bonus content on PatreonSupport this show http://supporter.acast.com/mads-world. Hosted on Acast. See acast.com/privacy for more information.

We're in the 21st century, and it would seem that the world is finally moving towards gender equality, right? Not so fast. Alice Evans joins Amit Varma in episode 297 of The Seen and the Unseen to discuss why some parts of the world are crawling slower than others. (For full linked show notes, go to SeenUnseen.in.) Also check out: 1. Alice Evans on her blog, website, YouTube, podcast, Google Scholar, King's College and Twitter. 2. Rocking Our Priors -- Alice Evans's podcast. 3. Ten Thousand Years of Patriarchy, Updated! -- Alice Evans. 4. An Intellectual History of the Patriarchy -- Alice Evans. 5. Friendships and Women's Liberation -- Alice Evans. 6. 3 Things I Got Wrong About Patriarchy -- Alice Evans. 7. What Don't We Know About Patriarchy? -- Alice Evans. 8. Overcoming the Global Despondency Trap -- Alice Evans. 9. Ideas of India: The Great Gender Divergence -- Alice Evans on Shruti Rajagopalan's podcast. 10. Ideas of India: Female Friendships and Fraternal Capital -- Alice Evans on Shruti Rajagopalan's podcast. 11. Select episodes of The Seen and the Unseen that discussed gender with Shrayana Bhattacharya, Paromita Vohra, Kavita Krishnan, Urvashi Butalia, Namita Bhandare, Manjima Bhattacharjya and Mahima Vashisht. 12. Mayer-Rokitansky-Küster-Hauser syndrome. 13. We Should Celebrate Rising Divorce Rates (2008) — Amit Varma. 14. Metrics of Empowerment — Episode 88 of The Seen and the Unseen (w Devika Kher, Nidhi Gupta & Hamsini Hariharan). 15. The Loneliness of the Indian Woman — Episode 259 of The Seen and the Unseen (w Shrayana Bhattacharya). 16. Desperately Seeking Shah Rukh — Shrayana Bhattacharya. 17. Chup: Breaking the Silence About India's Women -- Deepa Narayan. 18. Terror as a Bargaining Instrument -- Francis Bloch and Vijayendra Rao. 19. Russia: Bill to Decriminalize Domestic Violence -- Human Rights Watch. 20. The Argumentative Indian -- Amartya Sen. 21. Climate Change and Our Power Sector -- Episode 278 of The Seen and the Unseen (w Akshay Jaitly and Ajay Shah). 22. Nuclear Power Can Save the World — Joshua S Goldstein, Staffan A Qvist and Steven Pinker. 23. Emergent Ventures prizes for best new and recent blogs -- Tyler Cowen. 24. Zotero -- Your Personal Research Assistant. 25. Most of Amit Varma's writing on DeMon, collected in one Twitter thread. 26. On the Origins of Gender Roles: Women and the Plough -- Alberto Alesina, Paola Giuliano, Nathan Nunn. 27. The Ties That Bound -- Barbara A Hanawalt. 28. Jared Diamond and Paul Collier on Amazon. 29. Pseudoerasmus.-- Blog about economic history & comparative development. 30. Daron Acemoglu on Amazon. 31. Naila Kabeer on Twitter, LSE, her own website.and Google Scholar. 32. Sylvia Chant at LSE and Google Scholar. 33. Claudia Goldin at Harvard and Google Scholar. 34. Early Indians — Tony Joseph. 35. Tony Joseph's episode of The Seen and the Unseen. 36. Who We Are and How We Got Here — David Reich. 37. Wanderers, Kings, Merchants: The Story of India through Its Languages — Peggy Mohan. 38. Understanding India Through Its Languages — Episode 232 of The Seen and the Unseen (w Peggy Mohan). 39. On the Economic Origins of Restricting Women's Promiscuity -- Anke Becker. 40. Herding, Warfare, and a Culture of Honor: Global Evidence -- Yiming Cao, Benjamin Enke, Armin Falk, Paola Giuliano and Nathan Nunn. 41. The Politics of Marriage in Medieval India: Gender and Alliance in Rajasthan -- Sabita Singh. 42. The Ulema-State Alliance: A Barrier to Democracy and Development in the Muslim World -- Ahmet T Kuru. 43. Gendered Morality -- Zahra Ayubi. 44. Parkinson's Law — C Northcote Parkinson. 45. Sowmya Dhanaraj and Vidya Mahambare speak to Alice Evans on her podcast. 46. Structural Transformation and Employment Generation in India -- Amit Basole. 47. Networks and Misallocation: Insurance, Migration, and the Rural-Urban Wage Gap -- Kaivan Munshi and Mark Rosenzweig. 48. Curse of the Mummy‐Ji: The Influence of Mothers‐In‐Law on Women in India -- S Anukriti, Catalina Herrera‐Almanza, Praveen Pathak and Mahesh Karra. 49. Gender, Intersectionality and Smartphones in Rural West Bengal -- Sirpa Tenhunen. 50. Private Truths, Public Lies — Timur Kuran. 51. The Rise and Fall of Imperial China: The Social Origins of State Development -- Yuhua Wang. 52. Penis pins. 53. Female Monarchs and Merchant Queens in Africa -- Nwando Achebe. 54. The Enlightened Economy: Britain and the Industrial Revolution, 1700-1850 -- Joel Mokyr. 55. The Slave Trade and the Origins of Mistrust in Africa -- Nathan Nunn and Leonard Wantchekon. 56. Michael Pollan on coffee. 57. Public Goods and Ethnic Divisions -- Alberto Alesina, Reza Baqir and William Easterly. 58. The Progress of Humanity -- Episode 101 of The Seen and the Unseen (w Steven Pinker). 59. Claiming the State -- Gabrielle Kruks-Wisner. 60. Capable Women, Incapable States -- Poulami Roychowdhury. 61. The Big Questions -- Steven Landsburg. 62. A Godless Congregation — Amit Varma. 63. Honour and Shame: Women in Modern Iraq -- Sana Al-Khayyat. Check out Amit's online course, The Art of Clear Writing. And subscribe to The India Uncut Newsletter. It's free! Episode art by Simahina.

Did you know there are around 100 surrogacy births in Australia every year? Although Kat offered in February 2021, it takes time to get through the process to be a surrogate.Surrogacy is NOT illegal in Australia. What is illegal is to advertise for a surrogate and for a surrogate to be compensated in any way financially. It is also recommended the surrogate has finished growing her family first.This week we are speaking with Shannon & Kat, this is an incredible story of friendship and hope. Shannon was born with Mayer-Rokitansky-Küster-Hauser syndrome (MRKH) and chances are you have never heard of it. It's when a female is born without a uterus or cervix and possibly without one kidney. It's not life-threatening but it's definitely life-changing. She wasn't properly diagnosed until about 27 years of age, after multiple appointments and surgeries Shannon was at the end of the line with surrogacy as her only option. When sharing this news with her lifelong best friend, Shannon was not expecting Kat to offer to be her surrogate (especially at 6 weeks postpartum with her 2nd child). After having her own struggles conceiving and experiencing a devasting miscarriage a few years ago, Kat's perspective was completely shifted. Kat speaks about her motivation and inspiration for offering the ultimate gift ( carrying and birthing Shannon & Scott's baby boy) and also some of the interesting and sometimes offensive comments they have both received throughout this experience. Finally, I speak with the ladies about their decision to document their journey on their Instagram page "Two Friends & A Snowflake" and what inspired them to share. Kat is currently 33 weeks pregnant with this little miracle boy and they are truly on the home stretch, Shannon & Scott are SO close to meeting their son. I know so many will leave this episode feeling inspired, more educated on this topic and blown away by these women and this incredible story. Links & Resources: INSTAGRAM: https://www.instagram.com/twofriends_snowflake/SHANNON: https://www.instagram.com/shannonnankervis/KAT: https://www.instagram.com/klegdesign/FACEBOOK: https://www.facebook.com/Two-Friends-and-a-Snowflake-103892562031257You can follow and connect with me here:INSTAGRAM: https://www.instagram.com/the.innerviewpodcast/FACEBOOK: https://www.facebook.com/search/top?q=the%20innerviewThank you for listening if you enjoyed the episode i would love it if you could leave a rating and review! XSupport the show

In this episode, I sit down with Dr. Amanda Olson, physical therapist and pelvic expert behind Intimate Rose to discuss:The messaging that dilators are used to "stretch tight tissue" Reasons why penetration with intimacy, tampon use and medical exams can be painfulThe connection between brain and pelvic floor How dilators can be used to help the brain and body tolerate penetrationIntimate Rose product details (sizing, what they are made of, lubrication to accompany, ordering)Ways to progress when using a dilator How to know if a dilator(s) would be an option for youDr. Olson earned her Bachelor of Science degree from Pacific University, and a Doctorate Degree in Physical Therapy from Regis University, graduating as a member of the Jesuit National Honor Society. She is holds a Certification of Achievement in pelvic floor physical therapy (CAPP-PF) from the American Physical Therapy Association, and the Pelvic Floor Practitioner Certification (PRPC) through the Herman and Wallace Pelvic Institute. She is also a certified Stott Pilates instructor and RRCA certified running coach. She is the president and chief clinical officer of Intimate Rose where she develops pelvic health products and education.  She is passionate about empowering women and men with pelvic health issues including pelvic pain, incontinence, pregnancy, and post-partum issues. Dr. Olson teaches internationally on various pelvic health topics including pelvic floor dysfunction in runners. She has written newspaper and magazine articles on pelvic floor dysfunction, and running and also authored the book Restoring the Pelvic Floor For Women.InstagramWebsite - https://www.intimaterose.comUse code: MOMMYBERRIES for a special discount in your cartLinks mentioned in episode:Episode 27- Vulvovaginal painEpisode 47 - Pain with intercourse: Looking beyond the pelvic floor muscles The evidence:Al-Abbadey M, Liossi C, Curran N, Schoth DE, Graham CA. Treatment of Female Sexual Pain Disorders: A Systematic ReviewBakker RM, ter Kuile MM, Vermeer WM, Nout RA, Mens JW, van Doorn LC, de Kroon CD, Hompus WC, Braat C, Creutzberg CL. Sexual rehabilitation after pelvic radiotherapy and vaginal dilator use: consensus using the Delphi methodEdmonds DK, Rose GL, Lipton MG, Quek J. Mayer-Rokitansky-Küster-Hauser syndrome: a review of 245 consecutive cases managed by a multidisciplinary approach with vaginal dilatorsFalk SJ, Bober S. Vaginal Health During Breast Cancer TreatmentKetheeswaran A, Morrisey J, Abbott J, Bennett M, Dudley J, Deans R. Intensive vaginal dilation using adjuvant treatments in women with Mayer-Rokitansky-Kuster-Hauser syndrome: retrospective cohort studyMacey, K., Gregory, A., Nunns, D. et al. Women's experiences of using vaginal trainers (dilators) to treat vaginal penetration difficulties diagnosed as vaginismus: a qualitative interview studyMiles T, Johnson N. Vaginal dilator therapy for women receiving pelvic radiotherapy. Support the show

Welcome to the MRKH Podcast, Mind Over MRKH. MRKH affects 1 in 5000 female births, listen in to learn, connect, and be comforted by the MRKH warriors and community supporters we'll be joined by. We are a creative, resourceful, story telling and self explorative hub for all things Mayer Rokitansky Küster Hauser Syndrome. Those with this condition have varying underdevelopment of the reproductive system. So born without or with an underdeveloped womb, cervix and vagina, usually ovaries are present and female chromosomes. (But doesn't mean to say everyone with MRKH identifies as a woman) I'm Ellamae, I'm 29 and I was diagnosed with MRKH at 16. I am the founder and director of Va Va Womb (even though I was born without a womb) and Mind Over MRKH, I am your Podcast Host and producer - joined by MRKH warriors, friends and experts globally- to tell their stories, have their voice heard and ensure the next person diagnosed with MRKH feels less alone in their experiences. We'll be talking all things MRKH from mental health, to dealing with this new diagnosis, sex, relationships, fertility, living child free or child less, pleasure, self acceptance, vaginal dilating and more. Find out ways you can support the work we do over on mindovermrkh.org including our future magazine, creative events, gift boxes for MRKHers that we aim to package for the next person being diagnosed and check out our online shop too! This Podcast is receiving regular sponsorship to keep us going strong from our wonderful friends and U.K. Charity MRKH Connect, MRKH Connect is a UK charity designed to connect those with MRKH and provide support them and their families through events, resources and public outreach to raise awareness. Their private Members area provides a safe space for those with MRKH from all over the world to connect and share together in a safe environment and find comfort talking with those who truly understand what having MRKH is like. We hope as one big MRKH Family to continue to raise funds collectively to support those diagnosed with this life changing condition that can bring so much pain and so much grief, - we just want you to know that it will also come with a fiercely magical, loyal and loving community of people just like you - you are not alone. We hope this podcast keeps you company. and if you'd like to get involved do get in touch because your story matters.

In episode 117 of The Just Checking In Podcast, we checked in with Claire Graham. Claire Graham is the Public Engagement Consultant for the charity DSD Families. DSD Families is an information and peer support charity for families. They work together with families and their children, teens and young adults and healthcare providers in the UK to raise happy, healthy, confident and well-informed young people who can speak up for the support they need. Every year in the UK, approximately 150 children are diagnosed with a Developmental Sex Disorder (DSD) and there are approximately 2,300 children in total living with a DSD in the country. In this episode we discuss Claire's experience of anxiety throughout her life and the DSD she lives with called Mayer-Rokitansky-Küster-Hauser (MRKH) syndrome. MRKH means Claire is unable to have children and we discuss Claire's realisation about her fertility, learning how to live with it in adulthood and how its enabled her to code-switch between male and female social groups. We also discuss her frustrations when non-intersex people claim to speak on behalf of intersex people for their own political agendas and how children with DSDs can experience high levels of Gender Dysphoria. As always, #itsokaytovent Find out more about DSD Families here: https://www.dsdfamilies.org/charity Support Us: Patreon: www.patreon.com/venthelpuk GoFundMe: www.gofundme.com/f/help-vent-supp…ir-mental-health Music: @patawawa - Strange: www.youtube.com/watch?v=d70wfeJSEvk

Mayer-Rokitansky-Küster-Hauser-Syndrom. Und ihr so: Welcher Mayer? Und wer ist eigentlich Rokitansky? Ja, ihr ahnt es. Vier weiße Männer, die sich mit der weiblichen Anatomie befasst haben und dann irgendwann festgestellt haben: Oha! Eine Frau wurde ohne Scheide geboren! Lasst es uns ganz umständlich Mayer-Rokitansky-Küster-Hauser-Syndrom nennen, was sich niemand merken kann und 100 Jahre später einfach nur noch MRKH-Syndrom genannt wird. Ihr habt noch nie davon gehört? Lê und Maria bis vor ein paar Wochen auch nicht. Dabei ist es gar nicht so selten wie gedacht. Schätzungsweise eine aus 5000 Frauen wird damit geboren. Claudie zum Beispiel. Sie ist zu Gast bei den beiden und erzählt unter anderem davon, wie es bei ihr festgestellt und behandelt wurde. Was das alles mit Swingerclubs und Gang Bangs zu tun hat, warum Eizellen Schluckauf auslösen und wieso Schweinegebärmütter ein Thema sind, erfahrt ihr wie immer in der aktuellen Folge Lê Mariables. Wollt ihr selbst als Gast dabei sein oder habt Themen, die euch bewegen? Dann schreibt ihnen an Lemariables@ist-willig.de oder bei Facebook und Instagram. Sie freuen sich auch über Sprachnachrichten an 0173 5731 048. Foto: Matthias Baumbach Intro: Thomas Paelecke feat. Clement

Welcome to Episode 5 of Season 2   Today we are joined by Zerie who shares her journey with us. She is the author of the newly released book; I am also a Woman. . Zerie was diagnosed with the condition; MRKH. According to Medlineplus.com; Mayer-Rokitansky-Küster-Hauser (MRKH) syndrome is a disorder that occurs in females and mainly affects the reproductive system. This condition causes the vagina and uterus to be underdeveloped or absent, although external genitalia are normal. Affected women usually do not have menstrual periods due to the absent uterus. Often, the first noticeable sign of MRKH syndrome is that menstruation does not begin by age 16 (primary amenorrhea).  . Zerie shares her experience with MRKH and the impact it had on her life, marriage and family. She also highlights the impact that Culture could have on one's Infertility journey. . . Do join us to listen to her inspiring journey. . . Remember to Subscribe, leave a review and give this podcast a 5*rating to help spread more awareness about In(Fertility).  . . This is a podcast that shares stories of fertility & Infertility in Africa & all across the world. Representation Matters. Our stories matter. Our stories help others feel less alone. . If you would like to share your story, I would love to hear from you. Please email me at: fertilityconversations@gmail.com . Infertility | Pregnancy Loss| Childless Not By Choice | Baby Loss | Miscarriages | Male Factor Infertility | Donor Eggs | Fertility | Birth Control | Donor Sperm | Embryo Adoption | Surrogacy | IUI| IVF | Mental Health | Fertility Preservation |Egg Freezing | Sperm Freezing | PTSD | Sexual Cycles | Period Pains Infertility Podcast | Fertility Podcast I Menstruation |Adhesions | Adenomyosis | Fibroids | PCOS | Endometriosis | Irregular Cycles| Blocked Tubes | Fertility related topics |

This week we chat with Ashley - who, at the age of 16 noticed she wasn't hitting the same milestones as her peers leading to her diagnosis of Mayer-Rokitansky-Küster-Hauser Syndrome.  You can learn more about Ashley on tiktok @ashley_mrkh and you can learn more about MRKH on FB @canadamrkhconference As always you can find us on social media  IG @ididnotsignupforthis.podcast Tiktok @ididnotsignupforthis.pod FB @ididnotsuft Patreon.com/ididnotsignupforthis www.ididnotsignupforthis.ca 

In light of National Infertility Week , I felt that it was important to talk about infertility in the Black Women Community. I know personally that I am not knowledgeable about infertility and because we don't talk about it. It's such a delicate subject. So I felt it was important to have a Black woman come to the chair to talk about infertility. In the guest chair today, on a special episode called Owning Our Truths, I brought Stacey Brown. Stacey Brown was diagnosed at the young age of 25 with Mayer-Rokitansky-Küster-Hauser. MRKH syndrome is a disorder that occurs in females and mainly affects the reproductive system. This condition causes the vagina and uterus to be underdeveloped or absent, although external genitalia are normal. Which means a woman cannot get pregnant and will deal with infertility. On this episode Stacey talks about: Her diagnosis of MRKH The lack of information and compassion she received from a male doctor about her condition How she decided to be an advocate for MRKH What she wants Black women to know about infertility Support Groups mentioned in this episode: Beautiful You Foundation: Beautiful you Foundation Instagram:@beautifulyoumrkh Sistahs Surviving Infertility: @Sistahs Surviving Infertility Stacey's Instagram: stacey_n_thehouse Make sure to tune in to the podcast on Apple Podcast, Google Podcast , Spotify, and Anchor. Don't forget to subscribe, rate and leave a written review! To stay connected between episodes follow us on Instagram and Facebook and check out website: Instagram: @blackwomenunfilteredpodcast Facebook Page: Black Women Unfiltered Podcast Website: www.blackwomenunfiltered.net

Mayer-Rokitansky-Küster-Hauser or MRKH syndrome is a rare disorder that affects women. It affects their reproductive system and results in a missing uterus. On the show today to shed more light on this rare condition, the access to medical care that these women have in Malaysia, and the role of better sexual and reproductive health education are Dr Harizah Hatim from the Department of Obstetric and Gynaecology, from Hospital Canselor Tuanku Muhriz and Wani Ardy the founder of MRKH Malaysia. Image source: Shutterstock

Mayer-Rokitansky-Küster-Hauser or MRKH syndrome is a rare disorder that affects women. It affects their reproductive system and results in a missing uterus. On the show today to shed more light on this rare condition, the access to medical care that these women have in Malaysia, and the role of better sexual and reproductive health education are Dr Harizah Hatim from the Department of Obstetric and Gynaecology, from Hospital Canselor Tuanku Muhriz and Wani Ardy the founder of MRKH Malaysia. Image source: Shutterstock

When you're on a fertility journey the one thing you have in common with the other person is the desire to become parents. We all have a story to share, even if you don't think it matters, I assure you, your story matters to someone, your journey is important and to share it is the gift so it strengthens the next person to continue and push through. I had the privilege of hearing and reading Beck and Leonie's story. It's a journey that would leave you in awe of the special bond that two women will have forever. Beck has a condition called Mayer-Rokitansky-Küster-Hauser (MRKH) syndrome, which means she was born without a uterus but has her ovaries and can produce eggs. Her only option to have a family of her own would be via surrogacy. Enter Leonie a person with a heart to see her friend experience life to the full, which included having her own family. These women documented their journey and wrote a book called "Little Ray of Sunshine" to share the ups and downs and give hope to other women diagnosed with MRKH. There is light, there is hope and there is support. If you have MRKH or would like to get more information to support someone please head to: https://www.mrkhaustralia.org/ To purchase Little Ray of Sunshine head to https://www.alittlerayofsunshine.net/ Contact the ladies via the website above. If you would like to share your story, I'd love to hear from you. Please reach out and message me via Instagram or email me hello@allaboutfertility.com.au

In this episode, Charlotte Bishop opens up about her rare congenital disorder, while revealing her surprising discovery of a missing and underdeveloped reproductive system and her life-changing decision with dilated therapy.Terms used:Mayer Rokitansky Küster Hauser syndrome (MRKH) is a rare congenital disorder and abnormality of the female reproductive system. Females with MRKH are born with normal ovaries and fallopian tubes, an absent or incomplete vagina, no cervix, and either an underdeveloped uterus (uterine remnant) or no uterus at all, although external genitalia are normal. Affected females usually do not have menstrual periods due to the absent uterus. Often, the first noticeable sign of MRKH syndrome is that menstruation does not begin by age 16 (primary amenorrhea). The rare condition affects 1 in 5,000 women across the globe and renders those with the condition unable to carry children.MRKH Syndrome Type 1, the uterus and upper vagina are abnormal, but other organs are unaffected.MRKH Syndrome Type 2, females experience abnormalities in other organs as well (most often the fallopian tubes, and commonly the kidneys and the spine).Dilated therapy use vaginal dilators specially designed plastic tubes which are used to create a vagina. Most women who are born without a vagina are taught how to use vaginal dilators to create a vagina.Watch this interview on YouTube.com/ChildlessWomenTo support our series, visit AsToldByChildlessWomen.com

Welcome to Episode 20   Andreia Trigo joins us today to discuss MRKH and share her journey. Mayer-Rokitansky-Küster-Hauser (MRKH) syndrome is a disorder that occurs in females and mainly affects the reproductive system. This condition causes the vagina and uterus to be underdeveloped or absent, although external genitalia are normal. Join us as we listen to her incredible journey. . . Andreia is active on social media and can be reached on Instagram @andreiatrigorn . . Remember to Subscribe, leave a review and give this podcast a 5*rating to help spread more awareness about In(Fertility).  If you would like to share your story, I would love to hear from you. Please email me at: fertilityconversations@gmail.com   Follow me on Instagram @fertilityconversations Read my blog : www.fertilityconversations.com

Welcome one and all. Here is my intro to MRKH. What the hell is it? Learn some basics about Mayer-Rokitansky-Küster-Hauser syndrome and what is the difference between type 1 & 2 and a little about dilation. Follow me on Instagram: memyselfandmrkh --- Send in a voice message: https://anchor.fm/mmamrkh/message

The Australian Surrogacy Podcast Episode 92: Hannah. Hannah lives in South Australia was diagnosed with MRKH in her early 20's. she's long-known that she would need a surrogate to carry a baby for her. MRKH, or Mayer-Rokitansky-Küster-Hauser syndrome, is a disorder that often results in an absent or underdeveloped uterus. Hannah is a single mum and she became a mum when her cousin delivered her baby girl, Imara, in 2019. Her cousin's offer was on standby for 8 years before they decided to go ahead. Hannah had a few legal hurdles stood in their way because surrogacy was not an option for single parents in South Australia at the time.

This woman. You guys. Lacy Salander has covered the spectrum of emotion from the depths of despair to the summit of joy – and not just once – she's bounced back and forth quite a few times. At age 17 she was diagnosed with Mayer–Rokitansky–Küster–Hauser syndrome (MRKH), an incredibly rare disorder that results in being born without a uterus. Being 17 is hard enough, but processing a rare disorder and the fact that you will not bare children is something else. This struggle left her feeling isolated and out of control, and to regain that control she developed eating disorders that claimed her joy though adulthood. Struggling with body dysmorphia, she was obsessed with the scale, weighing herself more than 20 times a day. She grew into adulthood and despite the odds, overcame her eating disorders, only to be diagnosed with Multiple Sclerosis, where a whole new journey began. Tune in to find out how she turned her lack of uterus into a fulfilling role as a mother, her eating disorders into a powerful health journey and her MS diagnosis into a journey of self-discovery and an ability to listen to her body, meet its demands and treat it with love. This story is full of incredible insights, hope and joy – you don’t want to miss it. Follow Lacy on her incredibly uplifting social platforms, Facebook and Instagram. Learn more about Dr. Tiff at Healing Touch Chiropractic, or follow us on Facebook.

As a companion episode to Natalie's story (Episode 3), Mary dives in and educates us on what MRKH is and how it affects fertility. MRKH syndrome is the common name for Mayer-Rokitansky-Küster-Hauser syndrome. MRKH syndrome is a condition where young women are born either without a vagina or uterus or with an underdeveloped vagina and uterus. MRKH affects at least one in 4500 women. There are two types and this condition can be diagnosed with imaging such as MRI or ultrasound or through laparoscopic surgery. Some patient support and advocacy resources are: Beautiful You MRKH (https://www.beautifulyoumrkh.org) Accord Alliance (http://www.accordalliance.org) National Organization of Rare Disorders (https://rarediseases.org/rare-diseases/mayer-rokitansky-kuster-hauser-syndrome/) This episode was brought to you by Fertility Fundamentals. Fertility fundamentals is a naturopath led collective of women supporting each other in their fertility journey. Join the collective for free at www.facebook.com/groups/fundamentalfertility and come join your tribe! If you enjoyed today's episode, subscribe to the Fertility Stories podcast and leave a review. --- Send in a voice message: https://anchor.fm/fertilitystories/message

This week, LG chats to activist and The Pants Project founder, Tash Bishop. Tash has Mayer-Rokitansky-Küster-Hauser syndrome (MRKH), which means she was born without a womb.Throughout her teenage years Tash had no idea why she hadn’t started her period, even going so far as to fake it with food dye. We discuss the impact her eventual diagnosis had on her as a teenager – from relationships, to friendships, to her own sense of femininity.You can find Tash on social media @wearethepantsproject or thepantsproject.com @revisitingpod@lauragallop See acast.com/privacy for privacy and opt-out information.

CORRECTION: Mullerian Duct makes up upper 2/3 of vagina, and Urogenital Sinus makes up lower 1/3 of vagina In this week's episode, I talk about Mayer-Rokitansky-Küster-Hauser Syndrome, or just MRKH for short. This is when a woman is born without a uterus, 1/3 of her vagina, fallopian tubes, and cervix. I talk to Bryony who was born with MRKH, and explains her story of living with MRKH, her sex life, and how she wants to have kids in the future. If you want to be a guest on the show, please send me an email with a short biography about yourself and what you have to; thepatientwillseeyounow@gmail.com (you can also email me letting me know how I can improve this podcast, and what you might want to hear more or less on the show as well!) Logo made by David Falcone, find him here; https://www.davidfalcone.com/

We're replaying the Best of Heavy Flow while we're on hiatus over the summer! Subscribe to Heavy Flow on your favourite podcast player and sign-up for my weekly newsletter to get new episodes when we're back in the fall.  Today I'm talking to Tasha Jade, founder of Daily Magic, about her experience with Mayer-Rokitansky-Küster-Hauser (MRKH) syndrome, a condition that causes the vagina and uterus to be underdeveloped or absent. We discuss Tasha's MRKH experience, gender identity and wax on "what makes a woman?"  Heavy Flow is supported by Baby Mama Fitness, helping new Mamas get their old fitness back in a Body Positive environment. 15% with code HEAVYFLOW on any Baby Mama Fitness services. WooWoo Laboratory makes hand-crafted wellness and body care products that reconnect you with the cycles and rhythms of nature. Use code HEAVYFLOW for 15% off your order! Full Shownotes  Heavy Flow: Breaking the Curse of Menstruation Subscribe to the Heavy Flow email list  Follow @amandalaird on Instagram Heavy Flow is produced by: TK Matunda Music credit: Julia and Bradley of Home Studios Graphic design: Rachel Laird

Científicos brasileños lograron trasplantar por primera vez el útero de un cadáver a una mujer de 32 años que sufría del síndrome de Mayer-Rokitansky-Küster-Hauser, que afecta a aproximadamente una de cada 4.500 mujeres en todo el mundo y que hace que el aparato reproductor de una mujer no se formen correctamente. Después de un año nació la primera bebé sin ninguna complicación. El doctor Elmer Huerta explica más sobre este exitoso procedimiento.

Científicos brasileños lograron trasplantar por primera vez el útero de un cadáver a una mujer de 32 años que sufría del síndrome de Mayer-Rokitansky-Küster-Hauser, que afecta a aproximadamente una de cada 4.500 mujeres en todo el mundo y que hace que el aparato reproductor de una mujer no se formen correctamente. Después de un año nació la primera bebé sin ninguna complicación. El doctor Elmer Huerta explica más sobre este exitoso procedimiento.

Today I'm talking to Tasha Jade, founder of Daily Magic, about her experience with Mayer-Rokitansky-Küster-Hauser (MRKH) syndrome, a condition that causes the vagina and uterus to be underdeveloped or absent. We discuss Tasha's MRKH experience, gender identity and wax on "what makes a woman?"  Listen now: [powerpress] Subscribe: Apple Podcasts | Stitcher | Email | RSS What we discussed: What is Mayer-Rokitansky-Küster-Hauser (MRKH) syndrome How MRKH shows up in Tasha's body and how she was diagnosed Heteronormative treatment options for those with MRKH How being diagnosed with MRKH made Tasha question gender and sexuality The tension between Tasha's Catholic upbringing and treatment; and how her diagnosis shaped her spiritual journey Gender-identity and what makes a woman? Connect with Tasha: Website Instagram Twitter Facebook Resources mentioned in this episode: Heavy Flow Episode 17 with Bianca Sprague Subscribe & leave a review:  If you're into Heavy Flow, please subscribe in iTunes and write a review - that's the best way to support the show and help others find this podcast! Music Credit: Julia and Bradley of Home Studios Graphic Design: Rachel Laird

Hello everyone! Welcome back to Childless not by Choice, where my mission is to recognize and speak to the broken hearts of childless not by choice women, and men, around the world.  Civilla Morgan here! I am spreading the great news that we can live a joyful, relevant, and fulfilled life, although we could not, did not, have the children we so wanted.   Patreon Contributors: (Patreon contributors are those who have taken an interest in my platform whether they fit the childless not by choice demographic or not. They have decided to contribute a certain dollar amount on a regular basis to help fund my dream of creating awareness and conversation for the childless not by choice community globally. Click the Patreon link for details and to become a Patron!)   https://www.patreon.com/21stcenturyhannah   Jordan Morgan   Well, today we have a special guest!   Intro: Chelsea Patterson Sobolik says about herself, ‘There are many ways I could describe myself – wife, author, Congressional staffer, daughter, friend, lover of coffee, fresh flowers, and acoustic music, but the most important thing to know about me is that my heart, mind, and soul belong to my Savior, Jesus Christ. He saved my soul from the eternal separation that I rightly deserve due to my sin, adopted me, redeemed me and calls me His own. When I’m not writing, I’m working my full-time job, as a Legislative Assistant on child welfare policy on Capitol Hill – basically, I get to help work on policies that would make adoption and foster care better, and help improve the lives of children. My heart lights on fire whenever I get to write or talk about adoption! A large part of that stems from the fact that I was adopted from Bucharest, Romania as a child. Apart from my salvation, being adopted is the greatest gift I’ve ever received. I grew up in North Carolina, with five adopted siblings from Eastern Europe!  I am a graduate of Liberty University. My husband Michael and I call Washington D.C. home as of a couple of years ago, and it’s been the adventure of a lifetime. While I do miss parts of the south – for instance, people smiling at me and being generally more kind, D.C. quickly became home. I live on Capitol Hill, just a few blocks away from the Capitol, and  I work for one of my heroes. DC stole my heart, and I love getting to do life here. Welcome, Chelsea! Well, I think I wrote down 20 questions and points that stood out to me as I read your book. It was so hard to pull out just a few. But let’s get started!   The Gospel Coalition website has a blog post you wrote back in January 2017.  I’ve put the link to that post in the show notes under your contact information. But some of us were not able to adopt. In fact ‘why don’t you just adopt’ is a question every childless not by choice woman I know has been asked. It’s actually a pet peeve in the childless not by choice community, because if we had wanted to or were able to adopt, we would have. The average adoption these days is about $30k. Your job description is to work ‘as a Legislative Assistant on child welfare policy on Capitol Hill – basically, I get to help work on policies that would make adoption and foster care better, and help improve the lives of children.’ Was that on purpose? Do you ever have moments when you feel left out? 2) As I read the foreword to your book ‘Longing for Motherhood, the author of the foreword said, he ‘fully expects that sometime after this book is published and in your hands, Chelsea will, in fact, find herself a mother of children...but if not, she is not deprived.’ I had to read that a couple of times...but I was a little confused, especially after reading the reason for your childlessness--Mayer–Rokitansky–Küster–Hauser syndrome (MRKH). I even wondered if he referred to your job of helping to make the adoption process easier?     3) I recognized so many parallels between your experience and mine as I read your book. Grief is truly a globally felt and understood, or maybe I should say misunderstood, language; regardless of anything else that may differentiate us.  I begged and bargained with God. I told my mom she has five children of her own, and that she did not really understand my pain. Grief made me angry. Would you speak to the woman who is currently in the midst of the anger phase of her grief?     4) In the chapter, ‘Equipping the church to care for the childless’,  Thank you by the way, for highlighting the fact that some women are not only childless, we are husbandless. It’s what I like to call the double whammy. What do you think it will take to get the church to realize that the congregation is now more than ever, made up of more than mom, dad, and kids, but that there are single never married people, there are widowed people, there are childless people?   5)  In chapter two, you talked about redeeming the dead time in the day. It is so important to protect our thought life, isn’t it?   6) You mention that it is OK not to be OK. Can you encourage the woman or man out there, that is not feeling OK and wonders how to get through those feelings?   7) Well, as I mentioned in the beginning, I had so many notes, but as we wrap up, would you leave us with a word of encouragement with something you said in chapter 3: ‘your trials have an expiration date?   8) Chelsea, thank you so much for your time today. You are speaking to women and men who listen all around the world. You have a global audience. Is there anything else you would like to add that we should have covered?     Thank you for your time today Chelsea! Chelsea’s contact information: Website: http://www.chelseapattersonsobolik.com Book: ‘Longing for Motherhood, Holding onto Hope in the Midst of Childlessness’ Blog posts: https://www.thegospelcoalition.org/article/today-is-my-birthday-because-my-mom-chose-life/ (January 2017) https://www.thegospelcoalition.org/profile/chelsea-patterson/ “The fact that I am a woman does not make me a different kind of Christian, but the fact that I am a Christian makes me a different kind of woman.”– Elisabeth Elliot Books suggested by Chelsea: ‘The Broken Way’, by Ann Voskamp ‘Spiritual Depression’, by D. Martyn Lloyd-Jones   Articles and links of note: If you have not listened yet, below is a link to my episode ‘Adopt for the Right Reasons’ http://childlessnotbychoice.net/episode-82-adopt-for-the-right-reasons/ My contact information: Website: www.childlessnotbychoice.net and www.civillamorgan.com Facebook: booksbycivillamorgan Twitter: @civilla1 Instagram: @joyandrelevance Pinterest: Civilla M. Morgan, MSM LinkedIn: Civilla Morgan, MSM   Please help me out by taking this very short survey! https://survey.libsyn.com/21stcenturyhannah   Thank you for listening to this episode of Childless not by Choice. I appreciate it!   Until next time! Bye!

In the March/April 2015 JDMS podcast, Editor Phil Bendick, Bethany C. Rogers, and Kelsy L. Merideth discuss the article, "Sonographic Detection of Mayer-Rokitansky-Küster-Hauser Syndrome." Read the full article here.