Podcasts about mrkh

  Hello, and welcome to episode 175 of the Childless Not by Choice Podcast. My name is Civilla Morgan. My mission is to recognize and speak to childless women and men not by choice worldwide, reminding us that we can live joyful, relevant, and fulfilled lives, childless by choice.   Whether you have children or not, thank you for tuning in!     What is today's show about? Father's Day and Men's Health   Thank you, Patreon contributors: I would like to thank my Patreon contributors, who support the platform every month.    Your contributions help me pay my podcast producer, my podcast host, Zoom, where I interview most of my guests, and other expenses. Thank you very much!        If you are not yet a Patron, visit patreon.com/childlessnotbychoice to set up your monthly contribution. No matter your giving level, I have a gift for you!   If you prefer to give via PayPal, you can find me there at booksbycivillamorgan@gmail.com.  Your contributions to the platform are greatly appreciated! Thank you!   https://www.patreon.com/Childlessnotbychoice   Questions or comments? Contact me at:   Email: Info@civillamorgan.com                                                  Or   Visit the website at www.childlessnotbychoice.net, look to the left on the home screen, and click on the link below the telephone to leave me an up to 90-second voicemail. Body of episode: FATHER'S DAY  MEN'S HEALTH  So, well before President Biden's prostate cancer diagnosis, I had planned on discussing men's health for this year's Father's Day episode. In particular, I wanted to discuss causes of male childlessness, such as Azoospermia.  I've decided to put links in the show notes in regards to Azoospermia. Please check out the links for further information.  The basic definition of Azoospermia per The Cleveland Clinic website is:   ‘Azoospermia means there's no sperm in your ejaculate. Its causes include a blockage along the reproductive tract, hormonal problems, ejaculation problems or issues with testicular structure or function. Many causes are treatable. For other causes, it may be possible to retrieve live sperm to be used in assisted reproductive techniques like IVF.‘    As I think back through my episodes, I don't believe I've ever discussed men's health, or medical reasons men may be childless.  We've discussed fibroids, PCOS, endometriosis, adenomyosis, miscarriage, running out of time, aka the biological clock, MRKH, etc.  But I've never gone into much detail regarding issues surrounding the causes of childlessness in men.    I have had the great opportunity to interview several men about their experiences with childlessness, including how they have dealt with it. I will put links in the show notes on interviews I have conducted over the years with these wonderful men. Be sure to take a listen!    I also believe male childlessness is not as openly discussed as female childlessness because men and their spouses may find the issue embarrassing, shocking to their ego in a different way than a woman may feel about her childlessness, or maybe in much the same way.  In either case, there can be emotional and mental pain.    Some of the things that can cause infertility in men include:   AI Overview Male infertility can be caused by a variety of factors, including problems with sperm production or quality, hormonal imbalances, genetic disorders, infections, and environmental factors. Additionally, lifestyle choices like smoking, excessive alcohol consumption, and certain drug use can also contribute to infertility.  Here's a more detailed look at some of the key causes: 1. Sperm Problems: Low sperm count (oligospermia): A low number of sperm in the ejaculate. Absent sperm (azoospermia): No sperm in the ejaculate. Poor sperm motility: Sperm are unable to swim properly. Abnormal sperm morphology: Sperm are abnormally shaped, making it difficult for them to fertilize an egg.  2. Hormonal Imbalances:  Reduced testosterone: Low levels of testosterone can affect sperm production.  Hyperprolactinemia: Elevated levels of prolactin can interfere with sperm production.  Hormonal disorders affecting the pituitary gland or hypothalamus: These glands regulate hormone production.  3. Genetic Disorders: Klinefelter syndrome: A genetic condition affecting males. Cystic fibrosis: A genetic disorder that can cause blocked reproductive ducts. Myotonic dystrophy: A genetic disorder that can affect sperm production.  4. Infections and Inflammation: Epididymitis: Inflammation of the epididymis, the tube that carries sperm from the testicles.  Orchitis: Inflammation of the testicles.  STIs: Sexually transmitted infections like gonorrhea or chlamydia can cause inflammation and damage to the reproductive organs.  5. Environmental and Lifestyle Factors: Smoking: Smoking can reduce sperm count and quality.  Alcohol consumption: Excessive alcohol use can lower testosterone levels and affect sperm production.  Certain drug use: Anabolic steroids and other drugs can negatively impact sperm production.  Exposure to toxins or chemicals: Exposure to certain toxins, like pesticides, can affect fertility.  Obesity: Being overweight or obese can impact sperm quality.  6. Medical Conditions: Diabetes: Diabetes can affect sperm production and quality. Kidney failure: Kidney failure can also impact sperm production. Cystic fibrosis: A genetic disorder that can cause blocked reproductive ducts. Autoimmune diseases: Some autoimmune diseases can attack sperm.  7. Other Factors: Varicocele: Enlarged veins in the scrotum, which can raise testicular temperature and affect sperm production.  Testicular trauma: Injury to the testicles can damage sperm production.  Previous cancer treatment: Chemotherapy and radiation therapy can affect sperm production.  Undescended testicles: Testicles that don't descend into the scrotum.  Blockages or absences of tubes: Blockages in the reproductive tract can prevent sperm from being released.  This is for informational purposes only. For medical advice or diagnosis, consult a professional. AI responses may include mistakes. Learn more Whether you have children or not, your health is important. Be sure to go to all of your check-ups, especially if there is a family history of health issues. Get checked, don't wait.   Be OK with advocating for yourself. The healthcare industry may say no, you are too young for a particular test. But if you want that test, be insistent. Keep in mind that if your insurance does not cover the test because you are not of a certain age or whatever their parameters are, you may have to pay out of pocket.   Happy Father's Day to all the wonderful men out there who do the work of raising great people for this world.  Happy Father's Day to those of you who did not birth children, but are contributing to a child's life in beautiful and lasting ways.         Research links:   https://my.clevelandclinic.org/health/diseases/15441-azoospermia Articles/links of interest: https://ifstudies.org/blog/pronatalism-is-not-popular-yet Episode links to conversations with men: https://childlessnotbychoice.net/episode-143-the-things-men-talk-about-my-conversation-with-dr-robin-hadley/ https://childlessnotbychoice.net/episode-116-my-conversation-with-dave-jackson/ https://childlessnotbychoice.net/episode-141-downriver-nomad-my-conversation-with-rob-hutchings/ https://childlessnotbychoice.net/episode-130-about-fathers-day-and-childlessness/ https://childlessnotbychoice.net/episode-57-men-men-men-men-3/ My contact information: Website: www.childlessnotbychoice.net and www.civillamorgan.com Facebook: booksbycivillamorgan Instagram: @joyandrelevance Pinterest: Civilla M. Morgan, MSM LinkedIn: Civilla Morgan, MSM  

In this powerful and emotional episode of Fertility Village Live we shine a light on a journey shaped by courage, diagnosis, and the fierce, unwavering love between a mother and daughter.Brianna Gill joins us alongside her mother, Lou Ann, to share her experience of being diagnosed with MRKH (Mayer-Rokitansky-Küster-Hauser syndrome) as a teenager—a diagnosis that altered her vision of motherhood and ignited a long, heartfelt path to building her family through surrogacy.Together, Brianna and Lou Ann open up about the heartbreak, strength, and deep connection that carried them through every step. From navigating MRKH to choosing surrogacy, this episode is a tribute to resilience, mother-daughter love, and the power of support that never wavers.This conversation is for:Anyone living with or learning about MRKHFamilies exploring or undergoing surrogacyThose facing the emotional weight of infertility, especially around Mother's DayAnyone who believes in the beauty and strength of chosen and biological family✨ It's a story of heartbreak, hope, and how love builds families.

Mayer-Rokitansky-Küster-Hauser (MRKH) is not only tricky to spell, it's also more common than you think! MRKH syndrome affects around 1 in 4,500 female/AFAB folk. We are incredibly lucky to have guest host Lauren on the pod sharing expertise, hot tips, advocacy, and insider knowledge. Tune in!  Key resources: https://www.ogmagazine.org.au/19/3-19/primary-amenorrhoea/ https://www.rch.org.au/rch_gynaecology/young-women-and-parents-and-carers/RCH_MRKH_information/

Naga Munchetty, Dr Nighat Arif and Dr Christine Ekechi review their first year of That Time of the Month, looking back on some of the guests who have shared their experiences on health issues including fibroids, Endometriosis, PMDD and MRKH. That Time of the Month, part of 5 Live's Me, My Health & I series. Get in touch via @bbc5live on social media.

This time on In Can't Just Be Me, Anna is joined by Race Across The World's Betty Mukherjee, who won viewers' hearts this year with her down-to-earth humour and vulnerability as she travelled 15,000km from Japan to Indonesia with her brother, James. On the show, Betty revealed how a diagnosis of the rare condition MRKH syndrome at just 16 years old had altered the course of her life. Here, she shares with Anna how it felt getting such life-changing news at such a young age, and how the realities of the condition – like many people with MRKH, Betty was born with one kidney and no uterus – destroyed her confidence and ripped apart the vision of what she thought her life was going to look like. They discuss the isolation of having a medical condition that few people properly understand, and how finding escapism through travelling has always been a big part of Betty's life, but she wasn't prepared for how talking about her diagnosis on national television was going to change her life.If you or someone you know is struggling with any of the topics discussed in It Can't Just Be Me, you can find useful resources and support here: https://audioalways.lnk.to/ItcantjustbemeIG.Every Friday Anna, alongside a panel of experts, will be addressing YOUR dilemmas in our brand new episodes ‘It's Not Just You'! If you have a dilemma or situation you'd like discussed, reach out to Anna by emailing hello@itcantjustbeme.co.uk or DM her on Instagram @itcantjustbemepod Hosted on Acast. See acast.com/privacy for more information.

Naga Munchetty speaks to Prue Craven from Melbourne in Australia, who was born with the condition MRKH or Mayer-Rokitansky-Kuster-Hauser syndrome. It means she has ovaries but no womb, a condition which affects around 1 in every 5,000 women. In 2023 Prue underwent a womb transplant from a living donor, a family friend, and a year later gave birth to her daughter Rose. Part of 5 Live's Me, My Health & I series.

Naga Munchetty speaks to Betty Mukherjee, who took part in the BBC's Race Across the World, about being diagnosed with MRKH at the age of 16 and her decision to talk publicly about it on the programme. MRKH, or Mayer-Rokitansky-Kuster-Hauser syndrome, is a rare condition that means a woman is born with ovaries but no womb. Naga is also joined by Ally Hensley, who has written a book about her experience of the condition, as well as the regular experts Dr Nighat Arif and Dr Christine Ekechi to listen to your stories and answer your questions. That Time of the Month, part of 5 Live's Me, My Health & I series. Get in touch via @bbc5live on social media.

Molly McGlynn is a writer and director who was born in Montreal to Irish parents and grew up in the United States.  Mary Goes Round, premiered at the Toronto International Film Festival in September 2017 and has screened at dozens of film festivals and won multiple awards, including the Panavision Independent Cinema Award at the Santa Barbara Film Festival, Best Feature Film at the Vail Film Festival and Best Narrative Feature at the Annapolis Film Festival.    Selected television credits include Workin' Moms, The Wonder Years, Grace and Frankie and The Big Door Prize. Additionally, she was the producing director on Season 2 of Bless This Mess.   Her second feature film, Fitting In, (fka Bloody Hell), starring Maddie Ziegler and Emily Hampshire, had its World Premiere at SXSW in the Narrative Spotlight section in March 2023. Its International Premiere was at the prestigious Deauville American Film Festival and its Canadian premiere was at the Toronto International Film Festival. It won Best Canadian Feature Film at the Vancouver International Film Festival and was nominated for Outstanding Directorial Achievement in Feature Film by the Directors Guild of Canada.   She also hosts the podcast Hello, My Mom is Dead, an honest and authentic look into grief and loss.   Mayer Rokitansky Küster Hauser (MRKH) syndrome is a condition affecting approximately 1 in 5000 female births and leading to the absence or underdevelopment of the uterus, cervix and vagina. There are 2 types of MRKH, Type 1 as typified above and Type 2, in addition to the above may also affect the kidneys, bones, heart or hearing. Find out more and get support here www.mrkhconnect.org   Want to watch: YouTube Meisterkhan Pod (Please Subscribe)

In this final episode of my 8th season of Teenage Kicks, we hear from Betty and James Mukherjee, of Race Across The World fame. Watching the show we saw the brother and sister relationship develop as they completed challenges together, but they say it wasn't always like this - they fell out like typical siblings when they were growing up. They talk about how they handled their feelings during the harder times on the trip around Southeast Asia (remember when they lost their passports?) and the moment when Betty opened up to James about her diagnosis of MRKH, a medical condition which means she doesn't have a uterus. I ask Betty what it was like to be diagnosed at the age of 16 with something that changed her perception of her life, and I ask James how it felt to know at a young age that his sister's life had changed. They both talk about the need to allow feelings, their own and each other's, and - importantly - to open up about those feelings rather than keeping them locked in. She describes herself as a 'glass half empty' kind of girl, and how important it is to notice when she starts to catastrophise and take steps to change her previous patterns. Betty now shares the reality of her daily life on Instagram and in her women's wellbeing community It's a Balance Thing. She says it's important for her to talk to her friends (even though they couldn't understand) and to share with others going through the same. She recommends MRKH Connect for other people living with MRKH. James tells me about the moment on the show where he gets a hug from a cameraman after feeling emotional during that conversation, and how important it feels now to help men understand that allowing emotions is also important for them. He recommends Andy's Man Club as a good place to start if you're struggling to open up about mental health. You can also message James on Instagram. More teenage parenting from Helen Wills:Helen wills is a counsellor, a parent coach, and a teen mental health podcaster and blogger at Actually Mummy, a resource for midlife parents of teens.Thank you for listening! Subscribe to the Teenage Kicks podcast to hear new episodes. If you have a suggestion for the podcast please email helen@actuallymummy.co.uk.You can find more from Helen Wills on parenting teenagers on Instagram @iamhelenwills.For information on your data privacy please visit Zencastr's policy pagePlease note that Helen Wills is not a medical expert, and nothing in the podcast should be taken as medical advice. If you're worried about yourself or a teenager, please seek support from a medical professional.Episode produced by Michael J Cunningham.

From the archives of Sex Ed with DB, dive into two amazing conversations with directors Molly McGlynn and Sophie Hyde who are both reshaping sex education through their films! First, hear Molly McGlynn discuss her film Fitting In and why portraying MRKH syndrome on screen is so significant to her. Then hear from Sophie Hyde, who shares her sensitive approach to portraying sex work in making Good Luck to You Leo Grande. Listen to the full episodes: "Fitting In" As A Girl Without A Uterus with Molly McGlynn "Good Luck to You, Leo Grande" with Director Sophie Hyde ——   Do you have a silly sex story to share, need some advice, or have thoughts on the episode you just heard? Send us a voicemail for a chance to be featured on the podcast!  —— Follow Sex Ed with DB on: Instagram: @sexedwithdbpodcast TikTok: @sexedwithdbTwitter : @sexedwithdbThreads: @sexedwithdbpodcast YouTube: Sex Ed with DB Rep your favorite sex ed podcast with our brand new merch! Sign up for our newsletter with BTS content and exclusive giveaways here. Are you a sexual health professional? Check out DB's workshop: Building A Profitable Online Sexual Health Brand. Want to get in touch with Sex Ed with DB? Email us at sexedwithdb@gmail.com. —— Sex Ed with DB, Season 10 is Sponsored by: Lion's Den, Uberlube, and Magic Wand. Get discounts on all of DB's favorite things here! —— About Sex Ed with DB: Sex Ed with DB is a feminist podcast bringing you all the sex ed you never got through unique and entertaining storytelling, centering LGBTQ+ and BIPOC experts. We discuss topics such as birth control, pleasure, LGBTQ+ health and rights, abortion, consent, BDSM, sex and disability, HIV, sex in the media, and more. —— Sex Ed with DB, Season 10 Team: Creator, Host, Executive Producer: Danielle Bezalel (DB) Producer: Sadie Lidji Communications Lead: Cathren Cohen Marketing Coordinator: Mitch Coburn Social Media Coordinator: Emm-Kirsty Fraser

In this episode I had a great conversation with my good friend Lorenn on her struggle with infertility and how it brought the narcissists out. We had a great chat about this plus the childfree angle and how that brings the narcs out too. At just 15 years old, Lorenn was diagnosed with MRKH syndrome: a rare, congenital condition that affects the development of the female reproductive system. Having been a victim of narcissistic abuse in the face of her infertility, Lorenn has since been discussing the connection between these topics and helping to bring them to more public awareness: What do you do when a narcissist rubs their pregnancy news in your face? How do you handle their sudden discard once the baby arrives? What do you do when the narcissist shames you for having a medical condition like this? Learn more about Lorenn and her story: girlwithmrkh.com --- Send in a voice message: https://podcasters.spotify.com/pod/show/theshiftshow/message

Rory Uphold is joined by writer/director Molly McGylnn to discuss her new movie Fitting In and the incredibly personal story it's based on -- Molly's own trials and tribulations living with MRKH syndrome. What's it like to date knowing you cannot carry a child? What's it like to be told you have a blind Vagina at 16 years old? What does it even mean to be a women?!?... Rory and Molly dive into all of these questions and so much more. This episode is for anyone who's ever felt like they are different and/or don't fit in. FITTING IN is out NOW! For more info follow Molly HERE. To watch the show, make sure to sign up for the mailing list (and confirm via email!) HERE! For video clips from this episode or to follow Rory on INSTAGRAM click @icouldbeblonder and on TIKTOK @roryuphold  To send a story or leave a voice message for Rory click here: https://www.crimesoftheheartpod.com/ Got a Question? Wanna submit a story? We would LOVE to hear from you! Email us at rory@crimesoftheheartpod.com or DM on Instagram & TikTok Opening Jingle credit: Harry Foster Video vodcast credit: Fatih Andi Learn more about your ad choices. Visit megaphone.fm/adchoices

This podcast is sponsored by Fenomatch; an Artificial Intelligence-based platform for fertility clinics and banks. It helps fertility centers to choose the most suitable donor for each patient and improve the selection process at all levels. For more information- https://fenomatch.com/en/ . . ** Welcome to Season 5 of the Fertility Conversations Podcast. This is Episode 6 of this season. . Today we are joined by a lovely guest; Rima Zigaitis. Rima is a Mindset & MRKH Coach that is dedicated to guiding women to accept and transform their relationship with their difficult diagnosis and live a life of wholeness.  . At 16 years old,  Rima was diagnosed with MRKH, a condition in which a person is born without a uterus, cervix or vagina. Even after getting treatment, she struggled with her identity as a woman and her sense of self-worth. After carrying this diagnosis like a heavy secret for far too long, she embarked on her own personal healing journey to an empowered life.  . Realising she didn't want any other girl to struggle alone like she did, Rima took her decades-long career in adult learning and professional coaching and dedicated it to work with women with MRKH and other difficult diagnoses. Today, Rima helps guide women to accept themselves fully and live a life of wholeness. . Join us to listen to this inspiring episode. Remember to Subscribe, leave a review and give this podcast a 5*rating to help spread more awareness about In(Fertility).  . This is a podcast that shares stories of fertility & Infertility in Africa & all across the world. Representation Matters. Our stories matter. Our stories help others feel less alone. . If you would like to share your story, I would love to hear from you. Please email me at: fertilityconversations@gmail.com . Infertility | Pregnancy Loss| Childless Not By Choice | Baby Loss | Miscarriages | Male Factor Infertility | Donor Eggs | Fertility | Birth Control | Donor Sperm | Embryo Adoption | Surrogacy | IUI| IVF | Mental Health | Fertility Preservation |Egg Freezing | Sperm Freezing | PTSD | Sexual Cycles | Period Pains Infertility Podcast | Fertility Podcast I Menstruation |Adhesions | Adenomyosis | Fibroids | PCOS | Endometriosis | Irregular Cycles| Blocked Tubes | Fertility Coach I Fertility related topics | Cervical Incompetency I Transabdominal Cerclage I Vaginal Cerclage I Embryologist I EggBank I GlobalEggDonationAgency I Didelphys Uterus I Recurrent Pregnancy Loss I Fenomatch I Artificial Intelligence 

In this week's episode, I'm joined by Andreia Trigo @andreiatrigorn, a fellow nurse and the CEO and founder of Enhanced Fertility. We're talking all about Mayer-Rokitansky-Küster-Hauser also known as MRKH. Yep, you can be forgiven for not knowing much, if anything about this rare condition that severely impacts your fertility potential. Essentially if you have MRKH you're born without a womb. Can you imagine how devastating that diagnosis would be and how it would impact you? Imagine finding this all out as a teenager and then in later years realising how this would impact your ability to create a family! Andreia talks about her diagnosis, what she experienced to even get diagnosed in the first place, the accessibility for those who are diagnosed with MRKH, and the first UK uterine transplant.Andreia's fertility journey began when she was 17. She was concerned that she hadn't yet had her first period. After being told to come back after a year, she eventually had tests and scans done and one of the scans reported that a uterus was seen on the scan. It wasn't until later that it turned out to not be the case and Andreia had been incorrectly diagnosed.A year later, when Andreia was 18, she was diagnosed with MRKH. The process that she went through to get that diagnosis took just over 3 years. This involved invasive and painful investigations and procedures to reach a diagnosis. Something that still haunts Andreia to this day. We talked about whether there has been a change in the way that MRKH is diagnosed in the UK. Andreia tells us how it has and now there is a lot more support and tests that are available to be able to effectively diagnose MRKH promptly. Incredibly, 1 in 5000 women are diagnosed with MRKH. Later on, we talked about the first UK uterine transplant and what this means for women like Andreia. Andreia is passionate about improving access and decreasing the time to diagnosis and helps women find their way through diagnosis and the next steps. Andreia's advice to anyone on a fertility journey is, if you feel there is something wrong be persistent and feel empowered to investigate why.Find out more about Andreia at - https://efp.clinic/Follow @andreiatrigorn on InstagramFollow @YourFertilityNurse on InstagramFollow @TheFertilityPodcast on Instagram

You may have seen Kirsty in the news recently. She's the recipient of Australia's first uterus transplant and birthed her miracle baby a few months ago. Today she takes us through the grief of a hysterectomy following her first birth, her options for growing her family, the transplant clinical trial and her pregnancy.  At the time of recording, four Australian women have received uterus transplants in Australia, three of whom were born without a uterus (MRKH syndrome). It's so exciting to see such significant advancements in women's reproductive health and I'll always be grateful to be in the position to interview mothers and share their stories. Enjoy Kirsty's story, it's definitely a memorable one. Follow us on Instagram at @australianbirthstories for helpful articles, behind the scenes, and future episodes. --------- If you're considering The Birth Class, now is the time to buy.It just got bigger and better thanks to new content that enhances your birth education and preparation experience, including:  A cheat sheet for your birth partner. This simple outline takes your support person through early and active labour - what to expect, how to support and what to say when challenges arise Images of birth positions - the ideal addition for visual learners  3 meditations to release tension, foster trust and navigate a change of plans An illustrated guide to antenatal expressing - everything you need to know about collecting and storing colostrum For a limited time only, get 20% off with the code: ABS2024See omnystudio.com/listener for privacy information.

Ready for an Unforgettable Journey of Strength and Resilience?We're kicking off season 3 with a conversation with Ally Hensley, a woman who was born with a rare condition called Mayer-Rokitansky-Küster-Hauser (MRKH) Syndrome, resulting in the absence of a vagina and reproductive organs. Our conversation follows her relationship with her body before and after diagnosis, and talks about her personal healing journey to unlearning the feelings of shame she came to feel surrounding sex and sexuality.Today, Ally is an author, speaker, writer, and advocate for women's reproductive health.Show Notes[00:00:09] Introduction by Michelle:Michelle opens the episode by posing a thought-provoking scenario about adolescence, expectations, and the shock of discovering one's body is different, setting the stage for Ally's story.[00:00:30] Ally's Diagnosis:Ally Hensley recounts her personal experience with MRKH, discovered during her teenage years when she did not get her period, leading to a diagnosis that would forever change her perspective on womanhood and belonging.[00:01:37] Emotional Impact and Isolation:Ally discusses the emotional turmoil of growing up with MRKH, the societal pressures of womanhood, and the unique challenges of navigating adolescence with a condition few understand.[00:02:08] Humor and Societal Norms:Despite the challenges, Ally recalls moments of humor and the lengths she went to fit into societal norms, highlighting the complexity of identity and the desire to belong.[00:02:38] Disclosure and Shame:Ally talks about the internal battle with disclosing her condition, confronting shame, and finding the courage to speak her truth.[00:03:37] Acceptance and Community:The conversation shifts to Ally's path towards acceptance, the power of community, advocacy, and the importance of unlearning shame associated with MRKH.[00:05:00] Sexual Education and Discovery:Ally discusses the shortcomings of sex education, her personal exploration of sexuality, and the journey of creating her own vagina, reflecting on societal expectations and the pursuit of "typical".[00:09:14] Medical Journey:Ally shares her experience navigating the medical world at 16, the options presented for treatment, and the impact of her condition on family dynamics and personal growth.[00:12:46] Stigma and Silence:The discussion delves into the societal stigma surrounding MRKH, the importance of open dialogue, and the ongoing struggle against shame and secrecy.[00:17:49] Womanhood and Identity:Ally reflects on the concepts of womanhood, motherhood, and the societal pressures that define female identity, emphasizing the need for a broader, more inclusive understanding.[00:24:28] Reconnecting with the Body:Ally discusses the complex relationship between pain, pleasure, and body disconnect, sharing her journey towards healing and reconnecting with her body and sexuality.[00:32:06] Overcoming Shame:The episode concludes with Ally offering ideas for others struggling with shame, emphasizing the importance of community, self-acceptance, and challenging societal norms.Closing Remarks by Michelle:Michelle wraps up the episode, highlighting the significance of Ally's story in challenging silence and shame around sex and identity, and directs listeners to Ally's podcast, "Stigma Shakers," for more insights and inspiration.Where to Find Ally:Instagram: @Ally_HensleyWebsite: https://allyhensley.com/Podcast: Stigma ShakersLinktree: https://linktr.ee/allyhensley

This podcast is sponsored by Fenomatch; an Artificial Intelligence-based platform for fertility clinics and banks. It helps fertility centers to choose the most suitable donor for each patient and improve the selection process at all levels. For more information- https://fenomatch.com/en/ . ** Welcome to Season 5 of the Fertility Conversations Podcast. This is Episode 1 of this season. . In today's episode, we are joined by Andrea and Elin; the founders of the BUMPY app https://www.instagram.com/bumpyapp.se/?hl=en They join us to share their own fertility journeys and share details of their fertility support app; BUMPY. . Andrea was born with MRKH syndrome which affects the female reproductive system with an absent or undeveloped uterus as one of the main characteristics. This condition affects 1 in 4500 girls globally. Andrea has done 7 IVF treatments to retrieve eggs from her ovaries and fertilised the eggs with her husband's sperm and was one of the 1st people in the world to go through a uterus transplant from a deceased donor but unfortunately she became really ill months after the procedure and had to remove the uterus before getting a chance to get pregnant. She is currently navigating alternative options to parenthood. . Elin went through a 10 year long infertility journey falling into the category of unexplained infertility. She has experienced recurrent miscarriages, 12 to be exact, including an ectopic pregnancy. She has gone through numerous IVF cycles at several clinics and had 13 embryo transfers in total on her journey to parenthood.    Both Andrea and Elin are very passionate about supporting people going through infertility with their free support app BUMPY. This main app features include: A support community to meet and connect with others facing similar challenges or going through the same treatments or processes Find & compare fertility clinics in one place based on your needs Rate & review fertility clinics as honest opinions and sharing of experiences will help others navigate their journeys BUMPY has many fertility clinics across Europe listed with reviews and recommendations to explore. In addition to the app, they have a new website bumpyclinics.com for people to find and review clinics as well. . They also have a campaign: "Babies that are in our hearts and not in our arms"  Most people with the desire and longing to become a parent have already given the unborn baby a name. Bumpy is creating a baby name list so in the app where you can add your name anonymously to help spread awareness around infertility and pregnancy loss. . Join us to listen to this incredible episode with these 2 amazing ladies doing so much positive work and making a change to support people dealing with infertility and pregnancy loss. . . Remember to Subscribe, leave a review and give this podcast a 5*rating to help spread more awareness about In(Fertility).  . . This is a podcast that shares stories of fertility & Infertility in Africa & all across the world. Representation Matters. Our stories matter. Our stories help others feel less alone. . If you would like to share your story, I would love to hear from you. Please email me at: fertilityconversations@gmail.com . Infertility | Pregnancy Loss| Childless Not By Choice | Baby Loss | Miscarriages | Male Factor Infertility | Donor Eggs | Fertility | Birth Control | Donor Sperm | Embryo Adoption | Surrogacy | IUI| IVF | Mental Health | Fertility Preservation |Egg Freezing | Sperm Freezing | PTSD | Sexual Cycles | Period Pains Infertility Podcast | Fertility Podcast I Menstruation |Adhesions | Adenomyosis | Fibroids | PCOS | Endometriosis | Irregular Cycles| Blocked Tubes | Fertility Coach I Fertility related topics | Cervical Incompetency I Transabdominal Cerclage I Vaginal Cerclage I Embryologist I EggBank I GlobalEggDonationAgency I Uterus Transplant I Recurrent Pregnancy Loss I MRKH I Fenomatch I Artificial Intelligence     

Imagine a world where your very identity is challenged by your body—this is where Rima Zigaitis reshapes the narrative. In today's episode, the boys sit down with Rima Zigaitis, a beacon of hope and empowerment for women grappling with life-altering diagnoses. Founder of Sumaavi Coaching, Rima's own journey through the maze of Mayer-Rokitansky-Küster-Hauser (MRKH) syndrome—a condition that left her without a uterus, cervix, or vagina—fuels her mission. Beyond the physical, MRKH challenged Rima's very identity as a woman, a journey she candidly shares with the fellas. From misdiagnoses and surgeries to founding Sumaavi and forging partnerships with women's health nonprofits, Rima's tale is one of resilience, acceptance, and transformation. Delve into the nuances of MRKH, the emotional whirlwind of living with it, and how Rima is changing the narrative on women's health. This episode is a raw exploration of the challenges and triumphs faced by women like Rima, and a testament to the strength found in vulnerability. Join the post-episode conversation over on Discord! https://discord.gg/expeUDN"

Imagine a world where your very identity is challenged by your body—this is where Rima Zigaitis reshapes the narrative. In today's episode, the boys sit down with Rima Zigaitis, a beacon of hope and empowerment for women grappling with life-altering diagnoses. Founder of Sumaavi Coaching, Rima's own journey through the maze of Mayer-Rokitansky-Küster-Hauser (MRKH) syndrome—a condition that left her without a uterus, cervix, or vagina—fuels her mission. Beyond the physical, MRKH challenged Rima's very identity as a woman, a journey she candidly shares with the fellas. From misdiagnoses and surgeries to founding Sumaavi and forging partnerships with women's health nonprofits, Rima's tale is one of resilience, acceptance, and transformation. Delve into the nuances of MRKH, the emotional whirlwind of living with it, and how Rima is changing the narrative on women's health. This episode is a raw exploration of the challenges and triumphs faced by women like Rima, and a testament to the strength found in vulnerability. Join the post-episode conversation over on Discord! https://discord.gg/expeUDN"

Join DB in conversation with Molly McGlynn, the filmmaker and director behind "Fitting In" (starring Maddie Ziegler). The film explores the journey of a teenage girl diagnosed with the rare congenital disorder MRKH Syndrome. Molly discusses the challenges of translating such a personal experience onto the screen, the importance of depicting female pleasure in her work, and the subtleties in conversations about identities as it relates to MRKH Syndrome. Don't miss it!    (02:22 - 04:10) Exploring MRKH Syndrome in "Fitting In" (15:48 - 17:09) Making a film about such a personal experience (20:21 - 21:57) Maddie Ziegler's leading role  (30:31 - 32:15) Inclusivity in language (104 Seconds) (33:06 - 34:46) Exploring MRKH and intersex representation

At 16 years old, Molly McGlynn discovered why she'd never had a period. Diagnosed with MRKH syndrome, Molly was born without a uterus, cervix and an underdeveloped vaginal canal. Blindsided, teenage Molly was then promptly tasked with "making" her own vagina - and advised to keep it all a secret. Now a grownup and filmmaker, Molly shares how MRKH upended her teenage life, her journey to reconnecting with her own body and turning that trauma into the coming of age comedy Fitting In, starring Maddie Ziegler and Emily Hampshire.Send voice memos: hello@unladylike.coFollow @unladylikemedia: IG | Twitter | TikTokJoin the Unladies' Room PatreonShop mErChContact Multitude Productions for ad rates, etc. Learn more about your ad choices. Visit megaphone.fm/adchoicesSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

At 16 years old, Molly McGlynn discovered why she'd never had a period. Diagnosed with MRKH syndrome, Molly was born without a uterus, cervix and an underdeveloped vaginal canal. Blindsided, teenage Molly was then promptly tasked with "making" her own vagina - and advised to keep it all a secret. Now a grownup and filmmaker, Molly shares how MRKH upended her teenage life, her journey to reconnecting with her own body and turning that trauma into the coming of age comedy Fitting In, starring Maddie Ziegler and Emily Hampshire. Send voice memos: hello@unladylike.co Follow @unladylikemedia: IG | Twitter | TikTok Join the Unladies' Room Patreon Shop mErCh Contact Multitude Productions for ad rates, etc. Learn more about your ad choices. Visit megaphone.fm/adchoices

Molly McGlynn has a lot to distinguish her: an accomplished writer and director, her first feature film Mary Goes Round won multiple awards at all the cool festivals, and she's written for TV shows like Workin' Moms, The Wonder Years and Grace and Frankie. Molly's latest feature film, however, is a semi-autobiographical account of a teenager who discovers she was born wth a rare disorder called MRKH syndrome, which impacts the development of the uterus, cervix and vagina, and is sometimes classified as intersex.Hence, Fitting In, starring dance phenom Maddie Ziegler and Schitt's Creek actor Emily Hampshire, an extremely personal story about coping with the surprises our bodies can throw at us. We talk about Molly's own experience, the dark humour that pervades it, and what's involved in building your own vagina. See the Trailer here! Fitting In is set for theatrical release in February 2024. A video version of this episode here. A Transcription can be found on the episode page here. We love writing and would love for you to read what we write. Sign Up for our Substack Newsletter. If you would like to support the show, we do have partner opportunities available. Please email Wendy and Maureen at womenofir@gmail.com Learn more about your ad choices. Visit megaphone.fm/adchoices

This episode, we interview LA-based filmmaker Molly McGlynn, the writer, executive producer, and director of Fitting In starring Maddie Ziegler. Fitting In is a semi-autobiographical, coming-of-age “traumadey” that follows 16-year-old Lindy (Maddie Ziegler) who is unexpectedly diagnosed with a reproductive condition, MRKH syndrome. The diagnosis upends her plans to have sex, her presumptions about womanhood and sexuality, her relationship with her mother, and most importantly, herself. The film was also produced by singer-songwriter and actress Janelle Monae. In this very personal episode, Sophie reveals her relationship to MRKH and how this film is important to people who struggle with reproductive conditions and gender identity.  Fitting In will screen in select theaters in North America. A list of theater locations will be available in the coming weeks on https://www.bluefoxentertainment.com/films/fitting-in. Follow Blue Fox Entertainment on instagram @blue_fox_entertainment For more information about MRKH, visit https://www.beautifulyoumrkh.org/home.html.  Follow Molly:  Instagram: @mollymarymcglynn  Follow Sophie:  Instagram: @joan.of.arca Follow Caio:  Instagram: @punkrevolutionnow X: @PunkRevNow   YouTube channel: https://www.youtube.com/@BasedNewsNetworkPodcast   Follow us on Patreon to support our work and get access bonus episodes: https://www.patreon.com/BasedNewsNetwork   Reach out to us with questions at basednewsnetworkpod@gmail.com

My guest on today's episode of Period Story is Ellamae Fullalove, the poet, founder of the shame shaking community, storytelling and events platform, Va Va Womb and MRKH advocate. In this episode, Ellamae shares: How not getting her first period led to a diagnosis of MRKH, a condition that affects 1 in 5,000, in which the uterus and cervix is underdeveloped or absent and the vagina is shortenedHow she was diagnosed by the specialist team at Queen Charlotte's Hospital in London The emotional side of the diagnosis and how she went from hiding it to helping others with MRKH advocate for themselves How to get an MRKH diagnosis How she'll tackle the fertility side of MRKH, including the surrogacy campaigning work she does How she and a friend set up Vagina Fest How poetry and being creative is cathartic for herEllamae says that it's so important to find your people and support network so there's someone you can confide in. Telling your story is important and empowering. Thank you, Ellamae! A transcript is available on www.periodstorypod.comGet in touch:Tweet and IG @periodstorypodEmail periodstorypod@gmail.comGet in touch with Ellamae:InstagramWebsite Hosted on Acast. See acast.com/privacy for more information.

Former Miss Michigan and Michigan State Football player Jaclyn and Jon Misch are best known for their time together on CBS's “Survivor”, where Jaclyn won the title of first runner-up in Season 29 and where the couple had to navigate incredible challenges together on the island.One challenge that the couple knew they'd have to overcome together back at home was starting a family, as Jaclyn was born with MRKH - a condition that rendered her infertile and born without a uterus. In fact, Jaclyn was one of the first public people to bring more awareness to the disorder, which impacts approximately 1 out of every 5000 women.While Jaclyn and Jon knew that she wouldn't be able to carry a pregnancy, they never imagined all the twists and turns they'd experience on the way to parenthood - including a devastating 20-week stillbirth with a gestational surrogate who was carrying their little girl, Harper. Through faith, science and the generosity of Jon's first cousin, their gestational surrogate, Jaclyn and Jon are now the parents of a healthy little boy named Logan. And, while they now recognize that the experience strengthened their bond, they will never forget how infertility changed their marriage and their lives.This episode, which explores love, loss, resilience, and the realities of surrogacy, also features Staci Swiderski, Founder/CEO/Owner of Family Source Consultants, who supported this episode. Family Source Consultants is a leading authority in third party reproduction that matches and facilitates Gestational Surrogacy and Egg Donation arrangements for individuals and couples of all backgrounds in the US and Internationally. For more information, or to schedule a consultation, visit familysourceconsultants.com Hosted on Acast. See acast.com/privacy for more information.

How do we cope when we feel like our dreams have been taken from us? Dare to dream again with my friend, Hollie Jo Hepler. She's a mother, a lover of Jesus, ministry leader in the local church, and radically committed to helping women activate their God-given gifts so they can change the world. She's a speaker, podcaster, and a High Performance Leadership Coach. I've known Hollie Jo since I was in high school and I just adore this girl.Main Topics from the Episode:What do you do when you feel like your dreams have died? It's okay to start over MRKH syndrome + infertility IVF Gestational Surrogacy How to turn your pain into powerful for a testimony of hopeOvercoming a victim mindset DivorceTrauma + Therapy What do you do when God doesn't answer your prayers? LINKS FROM THE SHOWYour Best Birth CourseGet 50% OFF your first year of FLODESKFree Guide! 4 Keys to a Positive Birth Hollie Jo's Surrogacy Journey on GMALife on Purpose Podcast with Hollie Jo Hollie Jo's Instagram Hollie Jo's WebsiteConnect with Alise InstagramAlright friend. If you're a fan of the show and you'd like to show your support here's what you can do:You can SUBSCRIBE wherever you listen to podcasts! You can leave a REVIEW on iTunes. These reviews really help others find the show!You can go find me on Instagram @PERFECTLYWONDERFULLYMADE and send me a DM. I would love to hear from you! You can always send me an email or message me on social media! I'd love to hear what you're thinking about the show! alise@alisemarsh.comShare the love! You can TELL YOUR FRIENDS about the show! Screenshot and share your favorite episodes on social media and let me know you're listening!

THE POD IS BACK! With some older episodes that I have never got round to editing! Elsie is an amazing advocate of MRKH, having gone viral on TikTok talking all things vaginal dilation! Due to some tech difficulties last year when recording this episode, we will be re-recording some of the later questions and answers. I am in so much awe of Elsie's advocacy journey online, she will be helping so many people! vavawomb.com/mindovermrkh --- Send in a voice message: https://podcasters.spotify.com/pod/show/mindovermrkh/message

Jennifer was the second women to have a child through a uterus transplant using a deceased donor! Jennifer shares her story of being born with MRKH, a rare congenital disorder that affects the female reproductive system. Tune in to hear how Jennifer spent 15 years hearing she would never carry her own child, to the day she found out she was pregnant. IG: @delcomrkhjen

WE ARE BACK WITH AN MRKH POWER HOUSE! A big welcome to Frost! During her youth, she performed opera at Carnegie Hall, Lincoln Center, Sydney Opera House, and others, as the youngest member in the concert ensemble of Grammy Award winning Choir, Brooklyn Youth Chorus. Now, she lives in Brooklyn, New York, as a second year student at PRATT Institute, obtaining her Film BFA and minor in entrepreneurship while actively pursuing several projects, such as her LLC freelance company. Born in San Francisco, raised in New York City. Global Traveler, Avid explorer, and multilingual. She aspires after the works of Barbara Kopple and Agnes Varda, with a strong interest in documentary filmmaking. Follow the documentary @mrkhdocumentary and Frosts main instagram @frosttmartin. Big thanks to MRKH Connect for sponsoring this Podcast. --- Send in a voice message: https://podcasters.spotify.com/pod/show/mindovermrkh/message

Ki Griffin and D'Pharaoh Woon-A-Tai (Reservation Dogs, Only the Good Survive), stars of the “Traumedy” Bloody Hell, join Friday Night Movie to discuss their roles in this beautiful and impactful film. Bloody Hell is a unique coming of age story follows 16-year-old Lindy (Maddie Ziegler) who is unexpectedly diagnosed with a reproductive condition, MRKH syndrome. The diagnosis upends her plans to have sex, her presumptions about womanhood and sexuality, her relationship with her mother (Emily Hampshire), and most importantly, herself.  Follow all of the Friday Night Movie SXSW 2023 coverage and join Becky and Shai at the Wonder House March 11-14, noon-5pm, at Café Blue Downtown Austin, courtesy of the University of Arizona.  Sign up for the Friday Night Movie Newsletter for giveaways, curated episode playlists from the hosts and guests (including our mom), and at MOST one email per month (and probably fewer).  Closed captions for this episode are available via the player on the official Friday Night Movie homepage, the Podbean app and website, and YouTube.  The Friday Night Movie Family supports the following organizations: the DC Abortion Fund, HIAS, NAACP Legal Defense Fund | Equal Justice Initiative | Asian American Journalists Association. Subscribe, rate and review us on your favorite podcast platform, including iTunes | Spotify | Stitcher | Google Play | Podbean | Overcast. Catch up on all the Friday Night Movie SXSW special coverage in this playlist, including featured interviews from SXSW Wonder House hosted by the University of Arizona.  Play along with Friday Night Movie at home! Read the FNM Glossary to learn the about our signature bits (e.g., Buy/Rent/Meh, I Told You Shows, Tradesies, etc). Email us at info@p4tmedia.com or tweet @FriNightMovie, @pancake4table, @chichiKgomez, and/or  @paperBKprincess.  Follow our creations and zany Instagram stories @frinightmovie, @FNMsisters, and @pancake4table. Follow us on Letterboxd (@pancake4table) where we're rating every movie we've EVER watched.  Subscribe to our quarterly newsletter for exclusive giveaways and news! Theme music by What Does It Eat.  Subscribe and leave a review on IOS or Android at frinightmovie.com.

Helloooo, and welcome to Season 8 of Mads World! You're about to listen to Ways of Womanhood: Mayer-Rokitansky-Küster-Hauser syndrome with Ally Hensley!This week I am joined by author, speaker, ghost-writer, content creator and stigma shaker of the best kind, Ally Hensley. As a teenager, Ally Hensley discovered that she had been born with a rare condition, Mayer-Rokitansky-Küster-Hauser syndrome (MRKH), resulting in the absence of a womb and a vagina. Discovering her infertility just months after her sweet sixteen, Ally had a job to do: create a vagina from scratch. What followed, was a life of destruction, abuse and, as she says, a societal head-tilt asking, “do you look like Barbie down there?”After recently writing her debut memoir about sexual hang-ups, bad date blunders, and relearning what school never taught her, she decided to smoke out the shame, by telling her story to the world.Now, Ally is on a mission to debunk the myths around what it means to be a woman.In this episode, we discuss what MRKH is, the options presented to those with the syndrome, the feelings that one might experience after diagnosis, MRKH and fertility, the importance of options and what it can mean to be a woman.  Click here to find Mads World social media, submit questions to the website, or buy me a coffee. Cover Art: VeredienMusic: The.Jones.Project_93 Get bonus content on PatreonSupport this show http://supporter.acast.com/mads-world. Hosted on Acast. See acast.com/privacy for more information.

Meet Macie Davies, she has a rare condition called MRKH. She shares how she got diagnosed and shares her personal experience with surrogacy. We discuss her navigating how to raise her son with autism and what challenges she has faced in motherhood. JOIN US as we take out Personal Trash, Pop Culture Trash and Reality TV Trash!TRASHTOPICAN"what's in your starter kit?" " how many people have you been intimate with?" 

In this episode we were joined by Charlie Bishop, Palo Barker and Steph Penny. Often the wider world can assume that the only reasons we do not have children are failed IVF, failed adoption or didn't try. This narrative excludes many for whom getting pregnant can be life threatening or a hidden illness means one cannot conceive. Charlie, Palo and Steph all spoke about how invisible illnesses can compound and complete the unseen grief of not having children. We also asked them to share the support groups they have founded or are involved with, and resources that have helped them. We thank them all for speaking so honestly and informing us. Show notes: MRKH Connect a registered charity founded in 2014 supporting those with MRKH (Mayer Rokitansky Kuster Hauser) Syndrome which affects 1 in 5000 female births leading to the absence of underdevelopment of the uterus, cervix and shortened vagina. MRKH Connect has been involved in numerous research studies on mental health and the psychological impact of MRKH, runs events and aims to Connect those with MRKH together whilst providing valuable resources for the community and the public. Our Guest, Charlie, is the Director of MRKH Connect and also an advocate for MRKH and for the childless community also being part of the Tutum Journal editorial team, a magazine for, and by, childless women. Find out more by following @mrkhconnect across social media, @tutumjournal or email Charlie. Our guest Palo supports chronic survivors at Chronic Survivors Childless Warriors and myasthenia group Diet and Myasthenia Gravis UK You can also find on the admin teams for Childless Not By Choice-Non-Religious and Childless by Circumstance, Not by Choice Palo has a private group for Asian childless women and (optionally) chronic condition sufferers. This is a secret/private group by invitation, please contact The Full Stop and we'll connect you with Palo. Steph Penny is the author of Surviving Childlessness: Faith and Furbabies, and composer of Angel At My Keyboard. You can find all of Steph's work on her website.  

Did you know that one form of a uterine anomaly is having no uterus at all? It's crazy but it's true! This is known as MRKH syndrome (named after the four doctors who discovered it) and we had the privilege to talk to Riddhi Patel about their experience with this rare disorder. They tell us all about their diagnosis, symptoms they've experienced, and the struggle finding a doctor in a small California town. We also relish in the fact that your three Millennial blosts got to chat with a very cool Gen Z-er about bodies and sex. So, give your pad wings a middle part and start listening.

Elizabeth is an MRKH advocate in Nigeria, one of the first women with MRKH in Nigeria to raise awareness and form a support network. Elizabeth is 26 and was only officially diagnosed with MRKH last year. Read a short blog from Elizabeth she did for MRKH Connect here and listen to the full episode to hear her story! This Podcast is sponsored by our wonderful friends @MRKHCONNECT who are raise funds to connect, research and fund MRKH support and awareness. Listen to our full trailer here! Find out more about Mind Over MRKH --- Send in a voice message: https://anchor.fm/mindovermrkh/message

For fans of the hit CBS show Survivor, Season 29 runner-up Jaclyn Misch is the definition of bravery. She competed and dominated challenges that would make many of us bow out or buckle. In some ways Jaclyn's "Survivor" journey mirrored her journey with her husband, fellow survivor contestant Jon Misch, as they tried to conceive over the years.Born with MRKH Syndrome, a condition in which a woman's reproductive system is not fully developed. Jaclyn knew she'd need help to bring a baby into the world, but she didn't expect the tough twists and turns that she and her husband would have along the way. This episode is a candid look at surrogacy, why Jaclyn has used her voice to spread awareness of MRKH, miscarriage and infertility, and how she's managed to keep hope and resilience alive on and off camera.Thanks to episode sponsor, CSP, The Center for Surrogate Parenting, part of Ovation Fertility and the most experienced and longest standing surrogacy agency in the world. For over 40 years, they have successfully matched thousands of intended parents and surrogates to ensure a healthy journey and a happy outcome for all. For more, visit https://www.creatingfamilies.com See acast.com/privacy for privacy and opt-out information.

Archana AKA Purbi is an MRKH warrior from India. She is the founder of Indian MRKHers Corner and MRKH India Facebook group. She is also a BYMRKH Ambassador representing India Globally. For a living she works at PepsiCo and has 13 years experience in social media analytics, consumer insights and strategic consulting with different companies and industries. Find out more about Purbi over on Instagram @purbi_mrkh_india Sponsorship: This Podcast is receiving regular sponsorship from our friends and charity MRKH Connect. Listen to our full intro here MRKH Connect is a UK charity designed to connect those with MRKH and provide support to those with MRKH and their families through events, resources and public outreach to raise awareness for MRKH. Their private Members area provides a safe space for those with MRKH from all over the world to connect and share together in a safe environment and find comfort talking with those who truly understand what having MRKH is like. --- Send in a voice message: https://anchor.fm/mindovermrkh/message

Episode 12: Joaneva is a woman with MRKH and the founder of MRKH Africa Foundation. She grew up in Kenya and this is a little about her lift with MRKH. After being diagnosed with MRKH as a 23 year old woman, Joaneva began to research MRKH and not long after diagnosis' she was helping others in Kenya to form connections and built her foundation, MRKH Africa. Joaneva talks about how she felt utterly broken, so much so that to touch her skin would hurt - she was empty and felt alone. She tells us about how faith has healed her, along with connecting with others and climbing her own mountain of advocacy. She tells us what being a woman means to her- so much more than a body! So many beautiful, wise, words. I had shivers and tears as we spoke! Follow Joaneva here on Instagram, and find support in Africa here Sponsorship: This Podcast is receiving regular sponsorship from our friends and charity MRKH Connect. Listen to our full intro here MRKH Connect is a UK charity designed to connect those with MRKH and provide support to those with MRKH and their families through events, resources and public outreach to raise awareness for MRKH. Their private Members area provides a safe space for those with MRKH from all over the world to connect and share together in a safe environment and find comfort talking with those who truly understand what having MRKH is like. --- Send in a voice message: https://anchor.fm/mindovermrkh/message

DSD stands for differences in sex development. MRKH is one type of DSD, but there are hundreds of other variations and people with different DSD (AKA Intersex) traits. Listen in to learn a bit about different types of DSD's and check out the resources below to learn more. On this episode Ellamae speaks to Gabs and Esme who manage the Instagram community and support page for all types of DSD's called @yourpace.dsd which is managed by U.K. Charity and the most in depth resource for all types of DSD's - DSD Families. https://www.dsdfamilies.org/charity Gabs has MRKH and Esme has CAIS Complete Androgen Insensitivity Syndrome, they are working to ensure no one with a DSD feels alone and we can't thank these two DSD warriors enough for coming on to share their personal stories. They work they do is so admirable and I am so glad to have had them on the Pod. Gabs shares what it has been like having a DSD (MRKH Syndrome) and being a black female, she says there has been an additional stigma growing up and lots more representation is needed in the DSD community as to make sure no one feels alone, you must be able to find someone that looks like you so her involvement in advocacy and feeling part of a bigger community after joining with DSD families is so lovely to hear about. Esme shares with us her story of knowing she had a DSD her whole life, she talks about the surgery she had when she was born to growing with confidence as a young girl with CAIS - through relationships, friendships, mental health and more! Please note- as I am not a medical expert if I have incorrectly explained anything on this Pod please get in touch mindovermrkh@gmail.com and please use DSD families website as your medical resource. Our Podcast is to raise awareness, chat informally and ensure no body feels alone but we are not a medical podcast. To learn more: CAIS https://www.nhs.uk/conditions/androgen-insensitivity-syndrome/ MRKH https://www.mindovermrkh.org/mrkhanatomy https://www.mrkh.org.uk/mrkh.html Turners syndrome https://tss.org.uk/ Other DSD's: https://www.dsdfamilies.org/charity Sponsorship: This Podcast is receiving regular sponsorship from our friends and charity MRKH Connect. Listen to our full intro here MRKH Connect is a UK charity designed to connect those with MRKH and provide support to those with MRKH and their families through events, resources and public outreach to raise awareness for MRKH. Their private Members area provides a safe space for those with MRKH from all over the world to connect and share together in a safe environment and find comfort talking with those who truly understand what having MRKH is like.

In episode 117 of The Just Checking In Podcast, we checked in with Claire Graham. Claire Graham is the Public Engagement Consultant for the charity DSD Families. DSD Families is an information and peer support charity for families. They work together with families and their children, teens and young adults and healthcare providers in the UK to raise happy, healthy, confident and well-informed young people who can speak up for the support they need. Every year in the UK, approximately 150 children are diagnosed with a Developmental Sex Disorder (DSD) and there are approximately 2,300 children in total living with a DSD in the country. In this episode we discuss Claire's experience of anxiety throughout her life and the DSD she lives with called Mayer-Rokitansky-Küster-Hauser (MRKH) syndrome. MRKH means Claire is unable to have children and we discuss Claire's realisation about her fertility, learning how to live with it in adulthood and how its enabled her to code-switch between male and female social groups. We also discuss her frustrations when non-intersex people claim to speak on behalf of intersex people for their own political agendas and how children with DSDs can experience high levels of Gender Dysphoria. As always, #itsokaytovent Find out more about DSD Families here: https://www.dsdfamilies.org/charity Support Us: Patreon: www.patreon.com/venthelpuk GoFundMe: www.gofundme.com/f/help-vent-supp…ir-mental-health Music: @patawawa - Strange: www.youtube.com/watch?v=d70wfeJSEvk

Welcome to Me, Myself and MRKH the podcast! Come get comfy and let's start. Hi, I'm Laila and welcome on in now for season 2! In this episode, we are going to look at apps that can help us with mindfulness and our general mental health. Come on in and listen to our top 5 apps to make our mindfulness more technical! Don't forget to check out mind over MRKH the podcasts and subscribe on Spotify! If you want to get in touch, please check us out on all the socials Me, Myself and MRKH the Podcast on Instagram and Facebook. Want to tell your story? Message me on Instagram! Thank you for listening, I hope you have enjoyed this episode you will hear me next time! --- Send in a voice message: https://anchor.fm/mmamrkh/message

Ally was diagnosed at 16yo with MRKH. With firing ovaries - boobs, hips and a typical vulva, you would never know that internally her body had failed to form a womb, cervix and vaginal canal. While she spent 9 months pushing tubes into herself to create a vagina, she remained infertile. Ally shares with us the poignant, heartfelt and heartbreaking road this diagnosis led her down - from self destruction, sexual shame and surrogacy to international speaking on turning trauma into triumph. Her story is immensely powerful and incredibly inspiring. Her words tug at the human frailties inside all of us. Episode notes:Ally Hensley on Instagram: @ally__hensleyJoin me on Instagram: @wombroom.podcastIf you're enjoying the show please leave a review! Takes a mere few minutes and will help get these stories into more ears that really need them.You can listen to host Laksmi Wilson's story here:https://podcasts.apple.com/au/podcast/why-does-this-keep-happening-recurrent-miscarriages/id1484930949?i=1000528572349Support the show (https://www.patreon.com/wombroom)

Stacey of Wombless & Worthy speaks about her experience with MRKH. She explains what the diagnosis means, her personal journey and her outlook for the future. This episode is truly inspiring and educational.  Danielle's information:  Stacey's Information: IG: https://www.instagram.com/womblessandworthy  [In] Fertility Journey: Workbook Edition https://iamdaniellejoseph.com/shop/infertilityworkbook For speaking engagements - please fill out this quick form: https://iamdaniellejoseph.com/speaker Need a Mentor or Coach - let's connect: https://iamdaniellejoseph.com/contact To listen to previous episodes visit:  https://iamdaniellejoseph.com/podcast Find me on social media: Instagram: www.instagram.com/iamdaniellejoseph Facebook: https://facebook.com/MasterMentorandMinister

Welcome to Episode 5 of Season 2   Today we are joined by Zerie who shares her journey with us. She is the author of the newly released book; I am also a Woman. . Zerie was diagnosed with the condition; MRKH. According to Medlineplus.com; Mayer-Rokitansky-Küster-Hauser (MRKH) syndrome is a disorder that occurs in females and mainly affects the reproductive system. This condition causes the vagina and uterus to be underdeveloped or absent, although external genitalia are normal. Affected women usually do not have menstrual periods due to the absent uterus. Often, the first noticeable sign of MRKH syndrome is that menstruation does not begin by age 16 (primary amenorrhea).  . Zerie shares her experience with MRKH and the impact it had on her life, marriage and family. She also highlights the impact that Culture could have on one's Infertility journey. . . Do join us to listen to her inspiring journey. . . Remember to Subscribe, leave a review and give this podcast a 5*rating to help spread more awareness about In(Fertility).  . . This is a podcast that shares stories of fertility & Infertility in Africa & all across the world. Representation Matters. Our stories matter. Our stories help others feel less alone. . If you would like to share your story, I would love to hear from you. Please email me at: fertilityconversations@gmail.com . Infertility | Pregnancy Loss| Childless Not By Choice | Baby Loss | Miscarriages | Male Factor Infertility | Donor Eggs | Fertility | Birth Control | Donor Sperm | Embryo Adoption | Surrogacy | IUI| IVF | Mental Health | Fertility Preservation |Egg Freezing | Sperm Freezing | PTSD | Sexual Cycles | Period Pains Infertility Podcast | Fertility Podcast I Menstruation |Adhesions | Adenomyosis | Fibroids | PCOS | Endometriosis | Irregular Cycles| Blocked Tubes | Fertility related topics |

In light of National Infertility Week , I felt that it was important to talk about infertility in the Black Women Community. I know personally that I am not knowledgeable about infertility and because we don't talk about it. It's such a delicate subject. So I felt it was important to have a Black woman come to the chair to talk about infertility. In the guest chair today, on a special episode called Owning Our Truths, I brought Stacey Brown. Stacey Brown was diagnosed at the young age of 25 with Mayer-Rokitansky-Küster-Hauser. MRKH syndrome is a disorder that occurs in females and mainly affects the reproductive system. This condition causes the vagina and uterus to be underdeveloped or absent, although external genitalia are normal. Which means a woman cannot get pregnant and will deal with infertility. On this episode Stacey talks about: Her diagnosis of MRKH The lack of information and compassion she received from a male doctor about her condition How she decided to be an advocate for MRKH What she wants Black women to know about infertility Support Groups mentioned in this episode: Beautiful You Foundation: Beautiful you Foundation Instagram:@beautifulyoumrkh Sistahs Surviving Infertility: @Sistahs Surviving Infertility Stacey's Instagram: stacey_n_thehouse Make sure to tune in to the podcast on Apple Podcast, Google Podcast , Spotify, and Anchor. Don't forget to subscribe, rate and leave a written review! To stay connected between episodes follow us on Instagram and Facebook and check out website: Instagram: @blackwomenunfilteredpodcast Facebook Page: Black Women Unfiltered Podcast Website: www.blackwomenunfiltered.net

Episodio numero nueve. En este episodio contamos con Jossy Castro,  que nos comparte de un poco de su historia. Nos habla sobre su diagnostico de MRKH y su travesia a ser madre a traves de la maternindad subrrogada (Surrogacy).  Todo eso y un poco mas, por aqui, por Infertilidad Latina. 

In this episode, Charlotte Bishop opens up about her rare congenital disorder, while revealing her surprising discovery of a missing and underdeveloped reproductive system and her life-changing decision with dilated therapy.Terms used:Mayer Rokitansky Küster Hauser syndrome (MRKH) is a rare congenital disorder and abnormality of the female reproductive system. Females with MRKH are born with normal ovaries and fallopian tubes, an absent or incomplete vagina, no cervix, and either an underdeveloped uterus (uterine remnant) or no uterus at all, although external genitalia are normal. Affected females usually do not have menstrual periods due to the absent uterus. Often, the first noticeable sign of MRKH syndrome is that menstruation does not begin by age 16 (primary amenorrhea). The rare condition affects 1 in 5,000 women across the globe and renders those with the condition unable to carry children.MRKH Syndrome Type 1, the uterus and upper vagina are abnormal, but other organs are unaffected.MRKH Syndrome Type 2, females experience abnormalities in other organs as well (most often the fallopian tubes, and commonly the kidneys and the spine).Dilated therapy use vaginal dilators specially designed plastic tubes which are used to create a vagina. Most women who are born without a vagina are taught how to use vaginal dilators to create a vagina.Watch this interview on YouTube.com/ChildlessWomenTo support our series, visit AsToldByChildlessWomen.com

Welcome to Episode 20   Andreia Trigo joins us today to discuss MRKH and share her journey. Mayer-Rokitansky-Küster-Hauser (MRKH) syndrome is a disorder that occurs in females and mainly affects the reproductive system. This condition causes the vagina and uterus to be underdeveloped or absent, although external genitalia are normal. Join us as we listen to her incredible journey. . . Andreia is active on social media and can be reached on Instagram @andreiatrigorn . . Remember to Subscribe, leave a review and give this podcast a 5*rating to help spread more awareness about In(Fertility).  If you would like to share your story, I would love to hear from you. Please email me at: fertilityconversations@gmail.com   Follow me on Instagram @fertilityconversations Read my blog : www.fertilityconversations.com

We're replaying the Best of Heavy Flow while we're on hiatus over the summer! Subscribe to Heavy Flow on your favourite podcast player and sign-up for my weekly newsletter to get new episodes when we're back in the fall.  Today I'm talking to Tasha Jade, founder of Daily Magic, about her experience with Mayer-Rokitansky-Küster-Hauser (MRKH) syndrome, a condition that causes the vagina and uterus to be underdeveloped or absent. We discuss Tasha's MRKH experience, gender identity and wax on "what makes a woman?"  Heavy Flow is supported by Baby Mama Fitness, helping new Mamas get their old fitness back in a Body Positive environment. 15% with code HEAVYFLOW on any Baby Mama Fitness services. WooWoo Laboratory makes hand-crafted wellness and body care products that reconnect you with the cycles and rhythms of nature. Use code HEAVYFLOW for 15% off your order! Full Shownotes  Heavy Flow: Breaking the Curse of Menstruation Subscribe to the Heavy Flow email list  Follow @amandalaird on Instagram Heavy Flow is produced by: TK Matunda Music credit: Julia and Bradley of Home Studios Graphic design: Rachel Laird