Podcasts about untangling alzheimer

Christy Byrne Yates of Alz Authors has experienced all the unique challenges of sandwich caregiving.  Caring for both of her parents with neurodegenerative diseases (dementia and Alzheimer's disease) while she raised young kids taught her lessons she now shares with other caregivers. In this open and honest conversation, Christy shares the good times and the struggles of her caregiving experience.  Christy is a Licensed Educational Psychologist, author, speaker, and coach. In Building a Legacy of Love: Thriving in the Sandwich Generation, she shares her journey as a working mom caring for parents with dementia. A retired school psychologist, she now delivers keynotes, workshops, and coaching to support caregiving families. Christy co-hosts Untangling Alzheimer's & Dementia, a podcast by AlzAuthors.com, and has been featured in Women's World Magazine (Jan 2025) and has been interviewed on over 20 podcasts. She's also a contributing writer on Sandwich Generation caregiving topics. Connect with Christy Byrne Yates, author of Building a Legacy of Love: Thriving in the Sandwich Generation  Website: ChristyYates.com Buy the book: Building a Legacy of Love Media for Christy Yates Links-in-bio: Christy Byrne Yates: Coaching Caregivers Social Media: Facebook  Instagram  LinkedIn  Bluesky   YouTube Social Media for GrandPad:  Facebook Instagram LinkedIn YouTube Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible.  If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help. Whether you want to connect by phone or video, you can book a FREE 30-Minute Hospice Navigation Session, or a more in-depth 60-Minute Navigation Session for $95. If you need to troubleshoot the care you're already receiving, we're here to answer your questions. A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. We believe you deserve to have good hospice care. Book your session with an expert Hospice Navigator at theheartofhospice.com.   Connect with The Heart of Hospice Podcast and host Helen Bauer Website: theheartofhospice.com Social media: Facebook  Twitter  Instagram LinkedIn Email: helen@theheartofhospice.com Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com. Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

All Home Care Matters and our host, Lance A. Slatton were honored to celebrate the 10th Anniversary of AlzAuthors with the founding members and more.   About Marianne Sciucco:   Marianne Sciucco is a founder of AlzAuthors and the author of Blue Hydrangeas, an Alzheimer's love story. She's also co-producer and host of their podcast Untangling Alzheimer's and Dementia.   About Deb Bunt:   Deb took early retirement from her role in the youth offending service in London and moved to Suffolk seven years ago. As well as acquiring four grandchildren since she's been in Suffolk, she has also built an enduring friendship with Peter. This friendship Peter has given Deb a new lens through which to view her life.   Peter has enabled Deb to fulfil one of her life's ambitions – to be a published writer – and she now spends her time with Peter raising awareness of the condition or cycling insane distances around the county. Without question, Peter has enriched Deb's life.   About Tanya Ward Goodman:   Tanya Ward Goodman is the author of the award winning memoir, “Leaving Tinkertown.” Her essays and articles about travel, art, and the challenges and rewards of caregiving have appeared in numerous publications including The Washington Post, Orange County Register, Luxe, Premium Magazine, Atlas Obscura, and Variable West.   About Vicki Tapia:   Trained as an educator, Vicki Tapia has a proclivity for caring, spending over 30 years working as a Lactation Consultant teaching mothers and babies the art of breastfeeding.   When both her parents were diagnosed with dementia (Alzheimer's and Parkinson's-related) within a few months of each other, she took on the role of caregiver. As a coping mechanism, Vicki kept a journal detailing the many challenges her family faced along the way. Over time, her diary became a roadmap of sorts, morphing into the award-winning memoir Somebody Stole My Iron: A Family Memoir of Dementia.   About Dorothy Horne: Dorothy Horne is an author, speaker, and a former award-winning blogger for the Longview News-Journal. She was honored to be named a “Star Over Longview” in 2016. Dorothy is a member of AlzAuthors, “a global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others." She has served on the board of the East Texas Alzheimer's Alliance and facilitated several Alzheimer's support groups. Dorothy is a retired first grade teacher. One of her greatest delights is being "Dot-Dot" to her four grandsons. She lives in East Texas and enjoys photography and traveling.   About Susan Landeis:   Susan is a member of the AlzAuthors management team and Board of Directors. She became a featured author on the AlzAuthors website in 2020, and team member later the same year. Her roles include Graphic Designer, Curator of Custom Caregiver Collections, and LinkedIn Manager.    Susan is the author of her memoir, In Search of Rainbows: A daughter's story of loss, hope, and redemption and she also penned Optimal Caregiving: A guide for managing senior health and well-being.   About Jean Lee:   Jean Lee wrote lesson plans for 22 years as an elementary school teacher. She had no aspirations to write a book, however when both parents were diagnosed on the same day with Alzheimer's, her journey as their caregiver poured out on paper through Alzheimer's Daughter. After the sadness of her parents decline, life brought her comfort and healing through the formation of AlzAuthors.com, cofounded with Marianne Sciucco and Vicki Tapia. What started as a one-month collaboration has now taken on a thriving life of its own for a decade.   About Carol Bradley Bursack:   Carol Bradley Bursack was a caregiver for an older neighbor and seven aging family members, all of whom are represented by first-person vignettes in Minding Our Elders: Caregivers Share Their Personal Stories. However, Carol wanted to do more than tell her own stories. She wanted to give other caregivers a chance to do the same.   About Christy Byrne Yates:   Christy is an expert in navigating the challenges and opportunities in life including living in the “Sandwich Generation” — that time period of raising children while also caring for an aging loved one. Her book, “Building a Legacy of Love: Thriving in the Sandwich Generation” recounts her journey and learning as a working mother of two who also managed the care of her parents, both of whom had some form of dementia. She incorporates meditation, mindfulness and other evidence based mind/body practices into her work to support growth, resilience, and a pathway to living life fully.

Have you ever wondered what it's truly like to live with dementia? Either as the person diagnosed or as a loved one? Dementia Literature offer a unique window into these experiences, fostering empathy and providing invaluable insights. From poignant memoirs to practical self-help guides and imaginative fiction, exploring diverse genres about dementia can illuminate the challenges, emotions, and even unexpected joys encountered along the way. Join us as we discuss power of dementia literature and discover how these stories can empower individuals, families, and communities. Benefits of Reading Diverse Dementia Literature: Gaining deeper empathy and understanding: By stepping into the shoes of those affected by dementia, readers can cultivate compassion and reduce stigma. Finding practical strategies and support: Self-help books and caregiving guides offer tangible advice and resources for managing daily challenges. ** sparking meaningful conversations:** Books can act as catalysts for dialogue among families, friends, and healthcare professionals. Inspiring hope and resilience: Many stories showcase the strength and resilience of the human spirit in the face of adversity. Raising awareness and promoting advocacy: Literature can play a crucial role in educating the public. Advocating for better dementia care and support services may follow. Our Guest: Marianne Sciucco co-founded AlzAuthors.com. It is a global community of authors writing about Alzheimer's. They share their experiences to help others. Marianne serves on the board and management team. She produces and hosts their podcast, Untangling Alzheimer's and Dementia. She also wrote the Alzheimer's love story, Blue Hydrangeas.

Have you ever wondered what it's truly like to live with dementia? Either as the person diagnosed or as a loved one? Dementia Literature offer a unique window into these experiences, fostering empathy and providing invaluable insights. From poignant memoirs to practical self-help guides and imaginative fiction, exploring diverse genres about dementia can illuminate the challenges, emotions, and even unexpected joys encountered along the way. Join us as we discuss power of dementia literature and discover how these stories can empower individuals, families, and communities. Benefits of Reading Diverse Dementia Literature: Gaining deeper empathy and understanding: By stepping into the shoes of those affected by dementia, readers can cultivate compassion and reduce stigma. Finding practical strategies and support: Self-help books and caregiving guides offer tangible advice and resources for managing daily challenges. ** sparking meaningful conversations:** Books can act as catalysts for dialogue among families, friends, and healthcare professionals. Inspiring hope and resilience: Many stories showcase the strength and resilience of the human spirit in the face of adversity. Raising awareness and promoting advocacy: Literature can play a crucial role in educating the public. Advocating for better dementia care and support services may follow. Our Guest: Marianne Sciucco co-founded AlzAuthors.com. It is a global community of authors writing about Alzheimer's. They share their experiences to help others. Marianne serves on the board and management team. She produces and hosts their podcast, Untangling Alzheimer's and Dementia. She also wrote the Alzheimer's love story, Blue Hydrangeas. Find all of Marianne's books here! ++++++++++++++++++++++++++++++++++++++++ Related episodes: Caregiver Founders: Building Resources for Support An Alzheimer's Love Story (Blue Hydrangeas) ++++++++++++++++++++++++++++++++++++++++ Sign Up for more Advice & Wisdom - email newsletter. ++++++++++++++++++++++++++++++++++++++++++++++++++++++++ Please help us keep our show going by supporting our sponsors. Thank you. ++++++++++++++++++++++++++++++++++++++++++++++++++++++++ Feeling overwhelmed? HelpTexts can be your pocket therapist. Going through a tough time? HelpTexts offers confidential support delivered straight to your phone via text message. Whether you're dealing with grief, caregiving stress, or just need a mental health boost, their expert-guided texts provide personalized tips and advice. Sign up for a year of support and get: Daily or twice-weekly texts tailored to your situation Actionable strategies to cope and move forward Support for those who care about you (optional) HelpTexts makes getting help easy and convenient. ++++++++++++++++++++++++++++++++++++++++ Make Your Brain Span Match Your LifeSpan Relevate from NeuroReserve I've been focusing a lot on taking care of my brain health, & I've found this supplement called RELEVATE to be incredibly helpful. It provides me with 17 nutrients that support brain function & help keep me sharp. Since you're someone I care about, I wanted to share this discovery with you. You can order it with my code: FM15 & get 15% OFF your order. With Relevate nutritional supplement, you get science-backed nutrition to help protect your brain power today and for years to come. You deserve a brain span that lasts as long as your lifespan. ++++++++++++++++++++++++++++++++++++++++ Join Fading Memories On Social Media! If you've enjoyed this episode, please share this podcast with other caregivers! You'll find us on social media at the following links. Instagram Twitter LinkedIn  Facebook Contact Jen at hello@fadingmemoriespodcast.com Or learn more at Our Website!

Unlock the secrets of the brain's most enigmatic conditions with Dr. Mauro Montalbano, our esteemed guest from the University of Texas Medical Branch. He takes us on a journey through his lab's cutting-edge research into neurodegenerative diseases like Alzheimer's, Parkinson's, and ALS. You'll gain a deep understanding of the sinister role played by protein aggregates, particularly amyloid beta and tau proteins, and their prion-like behavior that drives the progression of Alzheimer's disease. Dr. Montalbano's journey from Sicily to Galveston adds a personal touch to his pioneering efforts in neuroscience, underscoring the critical need to decipher early-stage processes in disease progression.Our discussion ventures into the unpredictable realm of Alzheimer's, illustrated by a compelling family story that highlights the disease's capricious nature. Despite shared genetics and lifestyle, one sister succumbs to Alzheimer's while the other lives a long life, challenging our understanding of its onset. We examine the ongoing focus on amyloid plaques and the vital roles of microglia and astrocytes in regulating protein buildup in the brain. The conversation also taps into the mysteries of cognitive resilience among certain individuals and how current therapies aim to reduce inflammation as a strategy to slow progression.We further explore the intricate link between vascular health and Alzheimer's, where factors like atherosclerosis, sleep quality, and auditory health are potential culprits of cognitive decline. Dr. Montalbano guides us through the complexities of treating late-stage Alzheimer's and the promise of early intervention and preventative strategies. In a world increasingly focused on personalized medicine, he sheds light on the challenges and potential breakthroughs on the horizon, while also pondering the possible long-term impacts of COVID-19 on dementia prevalence. This episode promises to enlighten and challenge your understanding of these profound neurological puzzles.Thanks for listening to the Infectious Science Podcast. Be sure to visit infectiousscience.org to join the conversation, access the show notes, and don't forget to sign up for our newsletter to receive our free materials. We hope you enjoyed this new episode of Infectious Science, and if you did, please leave us a review on Apple Podcasts and Spotify. Please share this episode with others who may be interested in this topic! Also, please don't hesitate to ask questions or tell us which topics you want us to cover in future episodes. To get in touch, drop us a line in the comment section or send us a message on social media. Instagram @InfectscipodFacebook Infectious Science PodcastSee you next time for a new episode!

One parent with dementia is challenging enough, but when you have TWO parents with dementia while raising young children it's easy to fall into despair and chaos. When Christy Byrne Yates, a licensed educational psychologist, writer, and speaker, found herself in this situation she learned the necessary skills she needed to not only provide care to her parents and children but also to herself. In this replay of the AlzAuthors Aging & Amazing Books & Chit Chat discussion, she shares her insights, offering practical tips on navigating family dynamics, building a legacy of love in caregiving, and providing emotional resilience and support Christy's openness about her emotional struggles and the lessons learned from her parents offers a profound exploration of the caregiving experience, reminding listeners of the enduring power of love, empathy, and self-discovery within the caregiving journey. Her unique perspective and heartfelt reflections make this episode a must-listen for anyone seeking valuable insights and guidance in managing the complexities of caregiving for aging parents, especially those dealing with dementia. Author of Building a Legacy of Love: Thriving in the Sandwich Generation, she's a member of the AlzAuthors management team, and co-host and producer of the "Untangling Alzheimer's & Dementia" podcast. In this episode, you will: Discover the power of self-care while caring for parents with dementia. Uncover the secrets to building a lasting legacy of love in your caregiving journey. Navigate and defuse challenging family dynamics while caring for loved ones. Unlock the top tips for managing the unique challenges of being a sandwich generation caregiver. About Christy Byrne Yates, MS In addition to being an author, Christy is a Licensed Educational Psychologist (LEP), a credentialed school psychologist, a speaker, and life coach. As the mother of two – now grown – children, she became an expert in navigating life's challenges and opportunities, including living in the “Sandwich Generation,” those raising children while caring for aging parents. After the podcast Read Christy's AlzAuthors post: Christy Yates Helps Caregivers Raising Children Ease the Squeeze Purchase Building a Legacy of Love: Thriving in the Sandwich Generation. Note: We are an Amazon Associate and may receive a small commission from book sales. Connect with Christy Byrne Yates Website and blog Twitter Facebook Instagram LinkedIn YouTube About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here's what you need to know We've got merch! Shop our Store

One parent with dementia is challenging enough, but when you have TWO parents with dementia while raising young children it's easy to fall into despair and chaos. When Christy Byrne Yates, a licensed educational psychologist, writer, and speaker, found herself in this situation she learned the necessary skills she needed to not only provide care to her parents and children but also to herself. In this replay of the AlzAuthors Aging & Amazing Books & Chit Chat discussion, she shares her insights, offering practical tips on navigating family dynamics, building a legacy of love in caregiving, and providing emotional resilience and support Christy's openness about her emotional struggles and the lessons learned from her parents offers a profound exploration of the caregiving experience, reminding listeners of the enduring power of love, empathy, and self-discovery within the caregiving journey. Her unique perspective and heartfelt reflections make this episode a must-listen for anyone seeking valuable insights and guidance in managing the complexities of caregiving for aging parents, especially those dealing with dementia. Author of Building a Legacy of Love: Thriving in the Sandwich Generation, she's a member of the AlzAuthors management team, and co-host and producer of the "Untangling Alzheimer's & Dementia" podcast. In this episode, you will: Discover the power of self-care while caring for parents with dementia.Uncover the secrets to building a lasting legacy of love in your caregiving journey.Navigate and defuse challenging family dynamics while caring for loved ones.Unlock the top tips for managing the unique challenges of being a sandwich generation caregiver. About Christy Byrne Yates, MS In addition to being an author, Christy is a Licensed Educational Psychologist (LEP), a credentialed school psychologist, a speaker, and life coach. As the mother of two – now grown – children, she became an expert in navigating life's challenges and opportunities, including living in the “Sandwich Generation,” those raising children while caring for aging parents. After the podcast Read Christy's AlzAuthors post: Christy Yates Helps Caregivers Raising Children Ease the Squeeze Purchase Building a Legacy of Love: Thriving in the Sandwich Generation. Note: We are an Amazon Associate and may receive a small commission from book sales. Connect with Christy Byrne Yates Website and blog Twitter  Facebook Instagram  LinkedIn YouTube About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here's what you need to know We've got merch! Shop our Store  

In Episode 92, Don and I talked with three prolific writers who have made profound literary  contributions to the Dementia community and now pooled their talents and love of poetry to launch a beautiful anthology, “Poetry For the Dementia Journey”, that sprung from an online event featuring over 30 poets. (This just may be one of my favorite episodes!!) Marianne Sciucco is not a (dementia) nurse who writes but a writer who happens to be a nurse.  Her novel, Blue Hydrangeas, an Alzheimer's Love Story, is a testament to the power of love in the face of this heart wrenching disease.  She has since launched her own podcast “Untangling Alzheimer's and Dementia: An AlzAuthors Podcast” and is the Co-founder of the non-profit AlzAuthors.com, a global community of over 300 dementia-centered writers. Ann Campanella is the manager/director of AlzAuthors and is a former magazine and newspaper editor. She is the author of two award-winning memoirs and four collections of poetry. Her first memoir, Motherhood: Lost and Found, tells the story of her mother's descent into Alzheimer's and was named “One of the best Alzheimer's books of all time,” by Book Authority two years in a row. Sue Fagalde Lick has been nominated for the Pushcart Prize in both fiction and nonfiction and won first prize in Willamette Writers Kay Snow Awards for poetry.  Sue is co-founder of the Central Coast chapter of Willamette Writers  and former president of the Oregon Poetry Association.  Her latest release,  No Way Out of This, is a meSupport the Show.JOIN THE MOVEMENT FOR NURSING HOME REFORM BY SUPPORTING THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE or GO FUND ME Follow us on Twitter, FB, IG, & TiK Tok

All Home Care Matters and our host, Lance A. Slatton welcomed AlzAuthors to the show to learn about their new book "Poetry for the Dementia Journey - An AlzAuthors Anthology".   Marianne Sciucco - Co-Founder of AlzAuthors:   Marianne Sciucco is not a nurse who writes but a writer who happens to be a nurse, using her skills and experience to create stories that bear witness to the humanity in all of us. She writes contemporary, women's and young adult fiction. With more than 20-years' experience as a staff nurse and case manager, she's worked with countless families dealing with issues related to aging, elder care, Alzheimer's, and dementia. In 2002, she put the two together and began writing about the intricate lives of people struggling with health and family issues.   She published her debut novel, "Blue Hydrangeas, an Alzheimer's love story," in 2013 to glowing reviews. This book led her to become a co-founder and manager of AlzAuthors, the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Started by three women who had each written a book about dementia in 2015, there are now more than 350 author contributors. She is the producer and host for Untangling Alzheimer's and Dementia, an AlzAuthors Podcast. When not writing she works as a campus nurse at a community college in New York's Hudson Valley.   Ann Campanella - Manager and Director of AlzAuthors:   Ann Campanella is a former magazine and newspaper editor. She is the author of two award-winning memoirs and four collections of poetry. Her writing has appeared in newspapers, magazines, literary journals and online sites across the country and around the world. Her first memoir, Motherhood: Lost and Found, tells the story of her mother's descent into Alzheimer's at the same time Ann was trying to become a mother and dealing with a series of miscarriages.   This memoir was named “One of the best Alzheimer's books of all time,” by Book Authority two years in a row. Celiac Mom, Ann's second memoir, tells the story of her daughter's celiac diagnosis and her family's transition to a gluten-free lifestyle and has become a “go-to” resource for those with celiac.    Two of Ann's poetry books, What Flies Away and The Beach Poems, capture poignant moments of living with and loving someone with dementia. Ann is a manager and director of AlzAuthors, a nonprofit organization representing hundreds of books about Alzheimer's and dementia. In 2018, she was recognized by her hometown newspaper as one of the Most Influential Women in her community for her work promoting Alzheimer's awareness. Ann and her husband live on Lake Norman in North Carolina and enjoy nightly sunsets.   Sue Fagalde Lick - Caregiver & Author:   Sue Fagalde Lick, who lives on the Oregon coast, has published three poetry chapbooks, Gravel Road Ahead, The Widow at the Piano, and Blue Chip Stamp Guitar, and a full-length collection, Dining Al Fresco with My Dog. Her prose books include Stories Grandma Never Told, Childless by Marriage, and No Way Out of This: Loving a Partner with Alzheimer's. When not writing, she plays music wherever people will listen.

Welcome to another insightful episode of Untangling Alzheimer's and Dementia, and a replay of our recent book club with Aging and Amazing. In this episode, we bring together a panel of poets who share a common thread—each has navigated the challenges of caring for a loved one with dementia. Your hosts, Marianne Sciucco and Ann Campanella, along with guest authors Daniel Potts, MD, Sue Fagalde Lick, Sherri Levine, and Margaret Stawowy delve into the world of poetry as a powerful outlet for expressing the complex emotions tied to Alzheimer's and dementia care. Listen as these courageous caregivers discuss how poetry provides solace and a sense of connection amidst the trials of caregiving. From Sherri Levine's poignant reflections on taking flowers to her mother in hospice, to Margaret Stawowy's candid portrayal of medicating her mother, and Dan Potts's therapeutic use of art and poetry to connect with his father, each story shines a light on the personal battles and moments of tenderness that define the caregiving experience. We also have laughter amid the hardships as Sue Lick shares a day in the life at a nursing home through her evocative poetry. Don't miss her heartwarming tale of memory care residents joyously indulging in ice cream. Tune in to find inspiration, empathy, and perhaps a new way to process your own experiences through the beauty of poetry. Three Key Takeaways 1. Therapeutic Expression: Poetry serves as a potent form of therapy, helping caregivers process complex emotions and find joy amidst adversity. 2. Community and Support: Sharing stories and artistic expressions can cultivate a community of support, making the dementia journey less isolating. 3. Finding Humor: Embracing moments of joy and laughter is crucial, as highlighted by our lighthearted story, showing the importance of positivity in caregiving. About the Authors Sherri Levine, Stealing Flowers from the Neighbors Sue Fagalde Lick, Gravel Road Ahead Daniel Potts, MD, Bringing Art to Life Margaret Stawowy, co-editor of Storms of the Inland Sea, an anthology with Jim Cokas About the Moderators Ann Campanella, What Flies Away and The Beach Poems Marianne Sciucco, Blue Hydrangeas, an Alzheimer's love story Pre-order our new anthology, Poetry for the Dementia Journey. Register for our Poetry Reading June 3 at 4 pm EST. About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here's what you need to know We've got merch! Shop our Store

Welcome to another insightful episode of Untangling Alzheimer's and Dementia, and a replay of our recent book club with Aging and Amazing. In this episode, we bring together a panel of poets who share a common thread—each has navigated the challenges of caring for a loved one with dementia. Your hosts, Marianne Sciucco and Ann Campanella, along with guest authors Daniel Potts, MD, Sue Fagalde Lick, Sherri Levine, and Margaret Stawowy delve into the world of poetry as a powerful outlet for expressing the complex emotions tied to Alzheimer's and dementia care. Listen as these courageous caregivers discuss how poetry provides solace and a sense of connection amidst the trials of caregiving. From Sherri Levine's poignant reflections on taking flowers to her mother in hospice, to Margaret Stawowy's candid portrayal of medicating her mother, and Dan Potts's therapeutic use of art and poetry to connect with his father, each story shines a light on the personal battles and moments of tenderness that define the caregiving experience. We also have laughter amid the hardships as Sue Lick shares a day in the life at a nursing home through her evocative poetry. Don't miss her heartwarming tale of memory care residents joyously indulging in ice cream. Tune in to find inspiration, empathy, and perhaps a new way to process your own experiences through the beauty of poetry. Three Key Takeaways 1. Therapeutic Expression: Poetry serves as a potent form of therapy, helping caregivers process complex emotions and find joy amidst adversity. 2. Community and Support: Sharing stories and artistic expressions can cultivate a community of support, making the dementia journey less isolating. 3. Finding Humor: Embracing moments of joy and laughter is crucial, as highlighted by our lighthearted story, showing the importance of positivity in caregiving. About the Authors Sherri Levine, Stealing Flowers from the Neighbors Sue Fagalde Lick, Gravel Road Ahead Daniel Potts, MD, Bringing Art to Life Margaret Stawowy, co-editor of Storms of the Inland Sea, an anthology with Jim Cokas About the Moderators Ann Campanella, What Flies Away and The Beach Poems Marianne Sciucco, Blue Hydrangeas, an Alzheimer's love story Pre-order our new anthology, Poetry for the Dementia Journey. Register for our Poetry Reading June 3 at 4 pm EST. About the Podcast  AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here's what you need to know We've got merch! Shop our Store

This is a replay of our book club discussion with our friends at Aging & Amazing. "Books & Chit Chat" is a monthly book club featuring a title from the AlzAuthors collection. Throughout the month, readers participate in a discussion in the book club's Circle community at Aging & Amazing, then meet with the author for an in-depth discussion of the book and the caregiving journey. The online discussions are typically moderated by Andrea Couture, but she was unavailable for this episode so AlzAuthor founder, manager and author Marianne Sciucco is in her place for this episode. Florrie Munat, the author behind "Be Brave, a Wife's Journey through Caregiving," brings a deeply personal and touching account of her caregiving experience for her husband, Chuck, who faced a stroke and Lewy body dementia. Through her memoir, Florrie provides a candid and insightful portrayal of the challenges and triumphs she encountered, offering a beacon of hope and understanding for caregivers navigating similar paths. Her tender storytelling and unwavering strength make her a compelling and relatable guest, bringing a wealth of wisdom and empathy to our discussion on the complexities of dementia caregiving. We're honored to have Florrie's unique perspective and compassionate voice on the Podcast. Quote: When love and duty are one, then Grace is within you. - Florrie Munat In this episode, you will: Gain insights into the caregiving journey for dementia patients and discover effective support strategies. Explore the therapeutic benefits of writing as a tool for caregivers to navigate their emotions and experiences. Learn how to effectively navigate complex family dynamics in the context of providing care for individuals with dementia. Discover the powerful benefits of journaling as a coping mechanism and reflective practice during the caregiving journey. Understand the unique challenges and symptoms associated with Lewy Body Dementia to better support individuals with this condition. After the Podcast Register for Books & Chit Chat Purchase Be Brave: A Wife's Journey Through Caregiving, which is available as a paperback, and on Audible Note: We are an Amazon Associate and may receive a small commission on book sales at no cost to you Connect with Aging & Amazing Hear Florrie speak about Lewy Body Dementia on Untangling Alzheimer's & Dementia Read Florrie's AlzAuthors post: Memoir, Be Brave: A Wife's Journey Through Caregiving by Florrie Munat About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here's what you need to know We've got merch! Shop our Store

This is a replay of our book club discussion with our friends at Aging & Amazing. "Books & Chit Chat" is a monthly book club featuring a title from the AlzAuthors collection. Throughout the month, readers participate in a discussion in the book club's Circle community at Aging & Amazing, then meet with the author for an in-depth discussion of the book and the caregiving journey. The online discussions are typically moderated by Andrea Couture, but she was unavailable for this episode so AlzAuthor founder, manager and author Marianne Sciucco is in her place for this episode. Florrie Munat, the author behind "Be Brave, a Wife's Journey through Caregiving," brings a deeply personal and touching account of her caregiving experience for her husband, Chuck, who faced a stroke and Lewy body dementia. Through her memoir, Florrie provides a candid and insightful portrayal of the challenges and triumphs she encountered, offering a beacon of hope and understanding for caregivers navigating similar paths. Her tender storytelling and unwavering strength make her a compelling and relatable guest, bringing a wealth of wisdom and empathy to our discussion on the complexities of dementia caregiving. We're honored to have Florrie's unique perspective and compassionate voice on the Podcast. Quote: When love and duty are one, then Grace is within you. - Florrie Munat In this episode, you will: Gain insights into the caregiving journey for dementia patients and discover effective support strategies.Explore the therapeutic benefits of writing as a tool for caregivers to navigate their emotions and experiences.Learn how to effectively navigate complex family dynamics in the context of providing care for individuals with dementia.Discover the powerful benefits of journaling as a coping mechanism and reflective practice during the caregiving journey.Understand the unique challenges and symptoms associated with Lewy Body Dementia to better support individuals with this condition. After the Podcast Register for Books & Chit Chat Purchase Be Brave: A Wife's Journey Through Caregiving, which is available as a paperback, and on Audible Note: We are an Amazon Associate and may receive a small commission on book sales at no cost to you Connect with Aging & Amazing Hear Florrie speak about Lewy Body Dementia on Untangling Alzheimer's & Dementia Read Florrie's AlzAuthors post: Memoir, Be Brave: A Wife's Journey Through Caregiving by Florrie Munat About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here's what you need to know We've got merch! Shop our Store

Podcast Description: Jane Dwinell, co-author of Alzheimer's Canyon, brings a heartfelt and personal touch to the podcast. As a former Unitarian Universalist minister and with a background in nursing and hospice care, Jane's journey as a caregiver for her husband, Sky Yardley, provides a unique and empathetic perspective on the impact of Alzheimer's. Through their public speaking tour and workshops, Jane and Sky shared their experiences with dementia, aiming to break the silence and stigma surrounding the disease. Jane's dedication to storytelling and her commitment to raising awareness make her a valuable voice in the conversation about Alzheimer's and dementia. Quotes: "He wanted to meet his people. He wanted to meet other people with dementia. And by doing this church stuff and the workshops, it was his people all over the place." “He was still writing almost up to a year before his death, when he was still at home, and he was unable to dress himself and bathe himself. He was still writing.” In this episode, you will: Uncover the emotional rollercoaster of dementia caregiving.Discover the unique challenges of dementia caregiving during COVID-Understand the fluctuations in cognitive abilities in individuals with dementia.Learn the art of writing and publishing personal dementia caregiving experiences.Explore life after caregiving, including ways to move on both physically and emotionally. After the Podcast Purchase Alzheimer's Canyon: One Couples Reflections on Living with Dementia, which is available as a paperback, Kindle edition and on Audible Note: We are an Amazon Associate and may receive a small commission on book sales at no cost to you Read Jane's AlzAuthors post: ‘Alzheimer's Canyon' Honors Jane's Husband's Wish to Make Blog Posts a Book and Help Others with Dementia. Listen to Jane on the “Untangling Alzheimer's & Dementia” virtual event Podcast episode, “Writing Through the Fog: Three Authors Share Coping Strategies.” Jane's Bio: Jane Dwinell is a retired RN, freelance writer, and Unitarian Universalist minister. She is the author (or co-author) of four books including Birth Stories: Mystery, Power, and Creation and Alzheimer's Canyon: One Couple's Reflections on Living with Dementia, which won the Independent Publisher's of New England's 2023 award for narrative nonfiction. She lives in northern Vermont with her two cats, Tubby and Pogo, and her garden. Connect with Jane Facebook Instagram Website About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here's what you need to know We've got merch! Shop our Store  

Podcast Description: Jane Dwinell, co-author of Alzheimer's Canyon, brings a heartfelt and personal touch to the podcast. As a former Unitarian Universalist minister and with a background in nursing and hospice care, Jane's journey as a caregiver for her husband, Sky Yardley, provides a unique and empathetic perspective on the impact of Alzheimer's. Through their public speaking tour and workshops, Jane and Sky shared their experiences with dementia, aiming to break the silence and stigma surrounding the disease. Jane's dedication to storytelling and her commitment to raising awareness make her a valuable voice in the conversation about Alzheimer's and dementia. Quotes: "He wanted to meet his people. He wanted to meet other people with dementia. And by doing this church stuff and the workshops, it was his people all over the place." “He was still writing almost up to a year before his death, when he was still at home, and he was unable to dress himself and bathe himself. He was still writing.” In this episode, you will: Uncover the emotional rollercoaster of dementia caregiving. Discover the unique challenges of dementia caregiving during COVID- Understand the fluctuations in cognitive abilities in individuals with dementia. Learn the art of writing and publishing personal dementia caregiving experiences. Explore life after caregiving, including ways to move on both physically and emotionally. After the Podcast Purchase Alzheimer's Canyon: One Couples Reflections on Living with Dementia, which is available as a paperback, Kindle edition and on Audible Note: We are an Amazon Associate and may receive a small commission on book sales at no cost to you Read Jane's AlzAuthors post: ‘Alzheimer's Canyon' Honors Jane's Husband's Wish to Make Blog Posts a Book and Help Others with Dementia. Listen to Jane on the “Untangling Alzheimer's & Dementia” virtual event Podcast episode, “Writing Through the Fog: Three Authors Share Coping Strategies.” Jane's Bio: Jane Dwinell is a retired RN, freelance writer, and Unitarian Universalist minister. She is the author (or co-author) of four books including Birth Stories: Mystery, Power, and Creation and Alzheimer's Canyon: One Couple's Reflections on Living with Dementia, which won the Independent Publisher's of New England's 2023 award for narrative nonfiction. She lives in northern Vermont with her two cats, Tubby and Pogo, and her garden. Connect with Jane Facebook Instagram Website About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here's what you need to know We've got merch! Shop our Store

In this episode, we welcome Jean Lee, author of the memoir Alzheimer's Daughter. Jean opens up about her emotional journey of caring for both her parents as they battled Alzheimer's in their 80s. As a third-grade teacher, she noticed their health and abilities declining and, along with her sister, faced the tough task of convincing them to transition from their home to assisted living facilities - a decision that brought much guilt. Diagnosed on the same day, Jean's parents' journey through Alzheimer's was not only filled with challenges but also highlighted the beauty of their enduring love story. Despite the sorrow of losing her parents in a memory care unit, Jean found solace in writing her memoir and co-founding AlzAuthors. This organization supports authors who are caregivers. Her experiences also led her to establish alzauthors.com, a platform for authors sharing personal narratives about Alzheimer's and dementia. Through these endeavors, Jean transforms her personal struggles into support and inspiration for others on similar journeys. In this episode you will learn: 1. Understanding and respecting a loved one's feelings and autonomy is essential while transitioning them to a memory care facility. 2. Forming a relationship with your loved one's health providers and becoming part of their care team is invaluable. 3. Sharing the caregiving role amongst family members eases the burden and facilitates decision-making. 4. Prioritize self-care while you are in a caregiving role. 5. Sharing your caregiving journey through writing or speaking can be cathartic and beneficial for others in similar situations. About Jean: After the publication of Alzheimer's Daughter, Jean connected with other authors of Alzheimer's books, to co-found AlzAuthors.com with the goal of eliminating the stigma and silence often accompanying a diagnosis. AlzAuthors enables caregivers and those living with memory impairment to find written resources – memoirs, novels, nonfiction, children's books and caregiver guides – which educate and enlighten. AlzAuthors, a 501(c)3 nonprofit, is managed by six daughters of dementia and has posted weekly essays from over 350 authors with direct links to their books, all written from personal experience with Alzheimer's and dementia. Three years ago, they launched an award-winning podcast entitled Untangling Alzheimer's and Dementia: An AlzAuthors Podcast. Their newest initiative brings real books to real people in real places through Custom Caregiver Collections, placing handcrafted, table-top lending libraries in locations where people whose lives have been impacted by Alzheimer's and dementia gather. Connect with Jean: Website: Alzheimersdaughter.com ; AlzA Support the show Confessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn! Tune in on Whole Care Network

Send us a Text Message.In this episode, we welcome Jean Lee, author of the memoir Alzheimer's Daughter. Jean opens up about her emotional journey of caring for both her parents as they battled Alzheimer's in their 80s. As a third-grade teacher, she noticed their health and abilities declining and, along with her sister, faced the tough task of convincing them to transition from their home to assisted living facilities - a decision that brought much guilt.Diagnosed on the same day, Jean's parents' journey through Alzheimer's was not only filled with challenges but also highlighted the beauty of their enduring love story. Despite the sorrow of losing her parents in a memory care unit, Jean found solace in writing her memoir and co-founding AlzAuthors. This organization supports authors who are caregivers. Her experiences also led her to establish alzauthors.com, a platform for authors sharing personal narratives about Alzheimer's and dementia. Through these endeavors, Jean transforms her personal struggles into support and inspiration for others on similar journeys.In this episode you will learn: 1. Understanding and respecting a loved one's feelings and autonomy is essential while transitioning them to a memory care facility.2. Forming a relationship with your loved one's health providers and becoming part of their care team is invaluable.3. Sharing the caregiving role amongst family members eases the burden and facilitates decision-making.4. Prioritize self-care while you are in a caregiving role.5. Sharing your caregiving journey through writing or speaking can be cathartic and beneficial for others in similar situations.About Jean:After the publication of Alzheimer's Daughter, Jean connected with other authors of Alzheimer's books, to co-found AlzAuthors.com with the goal of eliminating the stigma and silence often accompanying a diagnosis. AlzAuthors enables caregivers and those living with memory impairment to find written resources – memoirs, novels, nonfiction, children's books and caregiver guides – which educate and enlighten. AlzAuthors, a 501(c)3 nonprofit, is managed by six daughters of dementia and has posted weekly essays from over 350 authors with direct links to their books, all written from personal experience with Alzheimer's and dementia. Three years ago, they launched an award-winning podcast entitled Untangling Alzheimer's and Dementia: An AlzAuthors Podcast. Their newest initiative brings real books to real people in real places through Custom Caregiver Collections, placing handcrafted, table-top lending libraries in locations where people whose lives have been impacted by Alzheimer's and dementia gather.Connect wiSupport the Show.Confessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn!Tune in on Whole Care Network

Lori Aden and Sheila Parsley are two incredible women who have taken their personal experiences as caregivers for loved ones with Alzheimer's and turned them into a powerful tool for support and understanding. Through their series of children's books, Lori and Sheila have found a unique way to address the complexities of Alzheimer's disease in a relatable and compassionate manner. With whimsical dragon characters and heartfelt storytelling, they guide children through the different stages of the disease, helping them understand and cope with the changes they may witness in their loved ones. Their books not only provide comfort and reassurance to children but also offer a valuable resource for caregivers who may be searching for ways to explain Alzheimer's to their young ones. Lori and Sheila's journey as caregivers and authors has allowed them to build a deep understanding of the challenges and emotions faced by those caring for someone with Alzheimer's. Their dedication to supporting others in similar situations is truly inspiring. Lori has also written a book called, “I Remember Me - The Mom Chronicles, which is a memoir of her time caring for her mother. She started with a Facebook thread for family that grew by leaps and bounds when family and friends asked to add others who were on a similar journey.  In this conversation you'll hear from both sisters about their struggles, and ultimately how this journey brought them closer together culminating in a delightful and touching resource for families. In this episode, you will be able to: Discover practical strategies for explaining Alzheimer's to children in a sensitive manner.Learn strategies for children to adapt to the changes in loved ones with Alzheimer's or dementia.Hear about strategies such as baby dolls for those with Alzheimer's and dementia.Learn about the financial strains experienced by caregivers.Explore the importance of community resources in Alzheimer's care, discovering how local support services and organizations can provide much needed assistance and a sense of community for both caregivers and those with Alzheimer's. website: http://irememberme.life  o  I Remember Me – The Mom Chronicles o   Grandma is Acting Funny – A Children's View of Alzheimer's o   Grandpa is Acting Funny – A Children's View of Alzheimer's  You can also hear Lori Aden read from the children's series on the “Poetry for the Dementia Journey,” episode of Untangling Alzheimer's & Dementia” Podcast  Listen Books by Loria Aden and Lori Aden & Sheila Parsley By Lori Aden I Remember Me - The Mom Chronicles: An Alzheimer's Journey Sharing Lessons Learned and Challenges Conquered as a Caregiver Category: Memoir, Caring for a Mother with Alz Link: https://amzn.to/3t4otaM By Lori Aden and Sheila Parsley Grandma is Acting Funny - Beginning Stage: A Children's View of Alzheimer's Category: Children's Books Link: https://amzn.to/46famRR Grandma is Acting Funny - the Middle Stage: A Children's View of Alzheimer's Category: Children's Books Link: https://amzn.to/3QzkVcB Grandma is Acting Funny - the Late Stage: A Children's View of Alzheimer's Category: Children's Link: https://amzn.to/3u9H4Xf Grandpa is Acting Funny - the Beginning Stage: A Children's View of Alzheimer's Link: https://amzn.to/3QE6nrZ Grandpa is Acting Funny - the Middle Stage: A Children's View of Alzheimer's Link: https://amzn.to/3SDbFXo Grandpa is Acting Funny - the Late Stage: A Children's View of Alzheimer's Link: https://amzn.to/3QwxPYO Baby Doll and Pet Doll Therapy Lori and Sheila referred to a Baby Doll that their mother loved. Baby Doll and Robotic Pet Therapy is often used for comfort for those with Alzheimer's and Dementia. Here are some links for both. They recommend NOT using all the accessories with the dolls. Toy Choi's 16 in Interactive Baby Doll Lissi Doll New York Doll Collection Robotic Pets

Lori Aden and Sheila Parsley are two incredible women who have taken their personal experiences as caregivers for loved ones with Alzheimer's and turned them into a powerful tool for support and understanding. Through their series of children's books, Lori and Sheila have found a unique way to address the complexities of Alzheimer's disease in a relatable and compassionate manner. With whimsical dragon characters and heartfelt storytelling, they guide children through the different stages of the disease, helping them understand and cope with the changes they may witness in their loved ones. Their books not only provide comfort and reassurance to children but also offer a valuable resource for caregivers who may be searching for ways to explain Alzheimer's to their young ones. Lori and Sheila's journey as caregivers and authors has allowed them to build a deep understanding of the challenges and emotions faced by those caring for someone with Alzheimer's. Their dedication to supporting others in similar situations is truly inspiring. Lori has also written a book called, “I Remember Me - The Mom Chronicles, which is a memoir of her time caring for her mother. She started with a Facebook thread for family that grew by leaps and bounds when family and friends asked to add others who were on a similar journey. In this conversation you'll hear from both sisters about their struggles, and ultimately how this journey brought them closer together culminating in a delightful and touching resource for families. In this episode, you will be able to: Discover practical strategies for explaining Alzheimer's to children in a sensitive manner. Learn strategies for children to adapt to the changes in loved ones with Alzheimer's or dementia. Hear about strategies such as baby dolls for those with Alzheimer's and dementia. Learn about the financial strains experienced by caregivers. Explore the importance of community resources in Alzheimer's care, discovering how local support services and organizations can provide much needed assistance and a sense of community for both caregivers and those with Alzheimer's. website: http://irememberme.life o I Remember Me – The Mom Chronicles o Grandma is Acting Funny – A Children's View of Alzheimer's o Grandpa is Acting Funny – A Children's View of Alzheimer's You can also hear Lori Aden read from the children's series on the “Poetry for the Dementia Journey,” episode of Untangling Alzheimer's & Dementia” Podcast Listen Books by Loria Aden and Lori Aden & Sheila Parsley By Lori Aden I Remember Me - The Mom Chronicles: An Alzheimer's Journey Sharing Lessons Learned and Challenges Conquered as a Caregiver Category: Memoir, Caring for a Mother with Alz Link: https://amzn.to/3t4otaM By Lori Aden and Sheila Parsley Grandma is Acting Funny - Beginning Stage: A Children's View of Alzheimer's Category: Children's Books Link: https://amzn.to/46famRR Grandma is Acting Funny - the Middle Stage: A Children's View of Alzheimer's Category: Children's Books Link: https://amzn.to/3QzkVcB Grandma is Acting Funny - the Late Stage: A Children's View of Alzheimer's Category: Children's Link: https://amzn.to/3u9H4Xf Grandpa is Acting Funny - the Beginning Stage: A Children's View of Alzheimer's Link: https://amzn.to/3QE6nrZ Grandpa is Acting Funny - the Middle Stage: A Children's View of Alzheimer's Link: https://amzn.to/3SDbFXo Grandpa is Acting Funny - the Late Stage: A Children's View of Alzheimer's Link: https://amzn.to/3QwxPYO Baby Doll and Pet Doll Therapy Lori and Sheila referred to a Baby Doll that their mother loved. Baby Doll and Robotic Pet Therapy is often used for comfort for those with Alzheimer's and Dementia. Here are some links for both. They recommend NOT using all the accessories with the dolls. Toy Choi's 16 in Interactive Baby Doll Lissi Doll New York Doll Collection Robotic Pets

In this episode of Untangling Alzheimer's & Dementia, hosts Marianne Sciucco and Christy Byrne Yates are joined by guests Cynthia Stone and Caroline Prioleau to discuss their documentary film "Keys Bags Names Words." The film explores the experiences of individuals and families affected by dementia and highlights the importance of community support and education. Cynthia and Caroline share their personal journeys and explain how their own encounters with dementia impacted their work on this powerful film. They discuss the process of creating the film, including obtaining footage and incorporating personal stories. The episode also delves into the impact of the film and the goals behind it, such as changing perceptions of dementia and promoting understanding and support. The conversation is filled with heartfelt stories, valuable insights, and practical resources, making it a must-listen for caregivers and anyone interested in Alzheimer's and dementia. So grab your headphones and tune in to gain a deeper understanding of the challenges and triumphs faced by individuals and families living with dementia. In this episode, you will: Gain valuable insights into Alzheimer's and dementia, empowering you to better understand the conditions and provide compassionate care.Understand the unique challenges faced by dementia caregivers and strategies to overcome them.Discover practical strategies for navigating the challenges of dementia caregiving, helping you feel more equipped and supported in your role.Explore a thought-provoking film about Alzheimer's and dementia, sparking meaningful conversations and raising awareness about these conditions. Watch the film trailer The resources mentioned in this episode are: Visit the AlzAuthors website at AlzAuthors.com to learn more about the global community of authors writing about Alzheimer's and dementia from personal experience.Subscribe to the Untangling Alzheimer's and Dementia podcast on major podcast platforms like Apple and Spotify, or visit AlzAuthors.com to listen to episodes.Email AlzAuthors at AlzAuthors@gmail.com if you have any questions or need assistance.Consider hosting a community screening of the film to start conversations and connect people to resources.Explore the hear/say Oral History Program, co-founded by Caroline Prioleau, to hear firsthand stories of lived experiences with Alzheimer's and dementia.Educate yourself and others about brain health and strategies for preventing or delaying the onset of Alzheimer's and dementia. Visit Alz.org. About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please donate here. Thank you for listening. We are a WCN Featured Podcast. Proud to be on The Health Podcast Network. Want to be on the podcast? Here's what you need to know. Shop our Store

In this episode of Untangling Alzheimer's & Dementia, hosts Marianne Sciucco and Christy Byrne Yates are joined by guests Cynthia Stone and Caroline Prioleau to discuss their documentary film "Keys Bags Names Words." The film explores the experiences of individuals and families affected by dementia and highlights the importance of community support and education. Cynthia and Caroline share their personal journeys and explain how their own encounters with dementia impacted their work on this powerful film. They discuss the process of creating the film, including obtaining footage and incorporating personal stories. The episode also delves into the impact of the film and the goals behind it, such as changing perceptions of dementia and promoting understanding and support. The conversation is filled with heartfelt stories, valuable insights, and practical resources, making it a must-listen for caregivers and anyone interested in Alzheimer's and dementia. So grab your headphones and tune in to gain a deeper understanding of the challenges and triumphs faced by individuals and families living with dementia. In this episode, you will: Gain valuable insights into Alzheimer's and dementia, empowering you to better understand the conditions and provide compassionate care. Understand the unique challenges faced by dementia caregivers and strategies to overcome them. Discover practical strategies for navigating the challenges of dementia caregiving, helping you feel more equipped and supported in your role. Explore a thought-provoking film about Alzheimer's and dementia, sparking meaningful conversations and raising awareness about these conditions. Watch the film trailer The resources mentioned in this episode are: Visit the AlzAuthors website at AlzAuthors.com to learn more about the global community of authors writing about Alzheimer's and dementia from personal experience. Subscribe to the Untangling Alzheimer's and Dementia podcast on major podcast platforms like Apple and Spotify, or visit AlzAuthors.com to listen to episodes. Email AlzAuthors at AlzAuthors@gmail.com if you have any questions or need assistance. Consider hosting a community screening of the film to start conversations and connect people to resources. Explore the hear/say Oral History Program, co-founded by Caroline Prioleau, to hear firsthand stories of lived experiences with Alzheimer's and dementia. Educate yourself and others about brain health and strategies for preventing or delaying the onset of Alzheimer's and dementia. Visit Alz.org. About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please donate here. Thank you for listening. We are a WCN Featured Podcast. Proud to be on The Health Podcast Network. Want to be on the podcast? Here's what you need to know. Shop our Store

Evening teatime October 19th, 7 pm EST. Coming to share a T-E-A with you is the co-founder and director of Alzheimer's & Dementia Resources, Marianne Sciucco. She is bringing a voice and story of Alzheimer's and Dementia from a nurse's eye view. Join Miss Liz with your questions, comments, and support, and let's make a difference together. LIVE STREAMING TO MULTIPLE PLATFORMS AND PODCAST STATIONS AND APPS. Live show on Miss Liz's YouTube channel below. Please give it a quick subscription and be notified when teatime is live. https://youtube.com/@misslizsteatimes?si=Q-jDZyTLDlPaNDyiMarianne Sciucco is not a nurse who writes but a writer who happens to be a nurse, using her skills and experience to create stories that bear witness to the humanity in all of us. She writes contemporary, women's and young adult fiction. A lover of words and books, she studied writing as an English major at the University of Massachusetts at Boston and worked as a newspaper reporter in New England. She eventually became a registered nurse to avoid poverty. With over 20 years of experience as a staff nurse and case manager, she's worked with countless families dealing with aging, elder care, Alzheimer's, and nursing home placement. In 2002, she put the two together and began writing about the intricate lives of people struggling with health and family issues. She published her debut novel, Blue Hydrangeas, an Alzheimer's love story, in 2013, to glowing reviews. This book led her to become a co-founder and director of AlzAuthors, the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. She is a podcast producer and host for Untangling Alzheimer's and Dementia, an Alzheimer's Podcast. Visit AlzAuthors.com. Mariann has written an award-winning prequel to Blue Hydrangeas called Christmas at Blue Hydrangeas and is currently working on A Wedding at Blue Hydrangeas. She is the author of Swim Season, a young adult novel based on her 11-year experience as a Swim Mom in club, high school, and collegiate swimming. She has also written several short stories, including Ino'sLove, Collection, and Birthday Party. All her work is available in Kindle, audiobook, and paperback. When not writing, she works as a campus nurse at a community college in New York's Hudson Valley. Follow Marianne on her blog, MarianneSciucco.com, Twitter, Facebook, and LinkedIn. LinkedIn: https://www.linkedin.com/in/marianne-sciucco/Facebook https://www.facebook.com/marianne.sciucco.1/Twitter https://twitter.com/MarianneSciuccoWebsite https://mariannesciucco.comAlzAuthors: https://alzauthors.com/You Tubehttps://www.youtube.com/channel/UCMyXT3ScTjhSyyI225Hcxlw

Join hosts Marianne Sciucco and Christy Byrne Yates on the Untangling Alzheimer's & Dementia podcast as they dive into a lively conversation with AlzAuthor Tami Anastasia about the challenges caregivers face in supporting individuals with dementia. Tami's book, Essential Strategies for Dementia Care: Learning to P.A.C.E. Yourself, offers guidance for caregivers on various topics, from communication techniques to managing emotions like anger and grief. The conversation begins with Tami providing insights on motivating individuals with dementia to engage in activities. She emphasizes the importance of understanding that all behavior is a form of communication and highlights the need to truly listen to the person with dementia. Tami also explores the concept of grief and loss in dementia care, emphasizing the need to connect with the person rather than correcting them. In this episode, you will be able to: Gain enlightenment on the unvoiced hurdles that caregivers of dementia patients face. Kickstart your efficient caregiving journey with the assistance of the P.A.C.E. model. Determine how to strike the delicate balance between personal self-care and caretaking for your loved ones with dementia. Learn techniques to reinforce your confidence and self-esteem in your role as a caregiver. Develop a deeper understanding of the emotional intricacies involved in dementia care and how to manage them. More about Tami Tami Anastasia is a reliable confidante to countless family caregivers, guiding them through the complexities of dementia care. Drawing strength from her personal experiences—especially her encounters with her grandmother's dementia diagnosis—she's dedicated to easing the journey for caregivers. Besides running a bustling private practice in the greater Bay Area of California, she inked her experiences and wisdom in the form of her practical book, Dementia Caregiver: Learning to P.A.C.E. Yourself. Connect with Tami Website LinkedIn Facebook X (Twitter) Instagram TikTok About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. We are a WCN Featured Podcast. Proud to be on The Health Podcast Network. Want to be on the podcast? Here's what you need to know. AlzAuthors.com Shop our Store

Join hosts Marianne Sciucco and Christy Byrne Yates on the Untangling Alzheimer's & Dementia podcast as they dive into a lively conversation with AlzAuthor Tami Anastasia about the challenges caregivers face in supporting individuals with dementia. Tami's book, Essential Strategies for Dementia Care: Learning to P.A.C.E. Yourself, offers guidance for caregivers on various topics, from communication techniques to managing emotions like anger and grief. The conversation begins with Tami providing insights on motivating individuals with dementia to engage in activities. She emphasizes the importance of understanding that all behavior is a form of communication and highlights the need to truly listen to the person with dementia. Tami also explores the concept of grief and loss in dementia care, emphasizing the need to connect with the person rather than correcting them. In this episode, you will be able to: Gain enlightenment on the unvoiced hurdles that caregivers of dementia patients face.Kickstart your efficient caregiving journey with the assistance of the P.A.C.E. model.Determine how to strike the delicate balance between personal self-care and caretaking for your loved ones with dementia.Learn techniques to reinforce your confidence and self-esteem in your role as a caregiver.Develop a deeper understanding of the emotional intricacies involved in dementia care and how to manage them. More about Tami Tami Anastasia is a reliable confidante to countless family caregivers, guiding them through the complexities of dementia care. Drawing strength from her personal experiences—especially her encounters with her grandmother's dementia diagnosis—she's dedicated to easing the journey for caregivers. Besides running a bustling private practice in the greater Bay Area of California, she inked her experiences and wisdom in the form of her practical book, Dementia Caregiver: Learning to P.A.C.E. Yourself.  Connect with Tami Website LinkedIn Facebook X (Twitter) Instagram TikTok About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. We are a WCN Featured Podcast. Proud to be on The Health Podcast Network. Want to be on the podcast? Here's what you need to know. AlzAuthors.com Shop our Store

Check it out on Spotify: https://spoti.fi/33Z4VsE Check it out on Apple: https://apple.co/3AHc2DT How to Meet Anybody with Steve Buzogany Episode: https://apple.co/3zuud1y Marianne Sciucco is not a nurse who writes but a writer who happens to be a nurse, using her skills and experience to create stories that bear witness to the humanity in all of us. She writes contemporary, women's and young adult fiction. A lover of words and books, she studied the craft of writing as an English major at the University of Massachusetts at Boston and worked for a time as a newspaper reporter in New England. She eventually became a registered nurse to avoid poverty. With more than 20-years' experience as a staff nurse and case manager, she's worked with countless families dealing with issues related to aging, elder care, Alzheimer's, and nursing home placement. In 2002, she put the two together and began writing about the intricate lives of people struggling with health and family issues. She published her debut novel, Blue Hydrangeas, an Alzheimer's love story, in 2013 to glowing reviews. This book led her to become a co-founder and director of AlzAuthors, the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. She is the podcast producer and host of Untangling Alzheimer's and Dementia, an AlzAuthors podcast. Visit AlzAuthors.com. Marianne has written an award-winning prequel to Blue Hydrangeas called Christmas at Blue Hydrangeas and is currently working on A Wedding at Blue Hydrangeas. She is the author of Swim Season, a young adult novel based on her 11-years' experience as a Swim Mom in club, high school, and collegiate swimming. She has also written several short stories, including Ino's Love, Collection, and Birthday Party. All of her work is available in Kindle, audiobook, and paperback. When not writing she works as a campus nurse at a community college in New York's Hudson Valley.  Dreams: Grow the Alzauthors Platform to reach 1%  of the caregivers in the U.S. Fund it through brands or a benefactor like assisted living, elder care lawyers, and stuff like that. 6.8 Million in the U.S 44-45 Million Across the world Finish out her own writing projects Continuing the Podcast Interviewing Be fully retired and travel Stay Healthy Introduce Them to: Maria Schriver - Head of the Woman's Alzheimer's Movement. Lisa Genova - Still Allison People influential in the Alzheimers Field (Authors and Caregivers) Favorite Book, Movie, or Podcast: Favorite Podcast is Friends and Fiction Podcast. #sistersinlaw Contact them at: https://alzauthors.com/ --- Support this podcast: https://podcasters.spotify.com/pod/show/timothy-douglas0/support

Check it out on Spotify: https://spoti.fi/33Z4VsE Check it out on Apple: https://apple.co/3AHc2DT How to Meet Anybody with Steve Buzogany Episode: https://apple.co/3zuud1y Marianne Sciucco is not a nurse who writes but a writer who happens to be a nurse, using her skills and experience to create stories that bear witness to the humanity in all of us. She writes contemporary, women's and young adult fiction. A lover of words and books, she studied the craft of writing as an English major at the University of Massachusetts at Boston and worked for a time as a newspaper reporter in New England. She eventually became a registered nurse to avoid poverty. With more than 20-years' experience as a staff nurse and case manager, she's worked with countless families dealing with issues related to aging, elder care, Alzheimer's, and nursing home placement. In 2002, she put the two together and began writing about the intricate lives of people struggling with health and family issues. She published her debut novel, Blue Hydrangeas, an Alzheimer's love story, in 2013 to glowing reviews. This book led her to become a co-founder and director of AlzAuthors, the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. She is the podcast producer and host of Untangling Alzheimer's and Dementia, an AlzAuthors podcast. Visit AlzAuthors.com. Marianne has written an award-winning prequel to Blue Hydrangeas called Christmas at Blue Hydrangeas and is currently working on A Wedding at Blue Hydrangeas. She is the author of Swim Season, a young adult novel based on her 11-years' experience as a Swim Mom in club, high school, and collegiate swimming. She has also written several short stories, including Ino's Love, Collection, and Birthday Party. All of her work is available in Kindle, audiobook, and paperback. When not writing she works as a campus nurse at a community college in New York's Hudson Valley.  Dreams: Grow the Alzauthors Platform to reach 1%  of the caregivers in the U.S. Fund it through brands or a benefactor like assisted living, elder care lawyers, and stuff like that. 6.8 Million in the U.S 44-45 Million Across the world Finish out her own writing projects Continuing the Podcast Interviewing Be fully retired and travel Stay Healthy Introduce Them to: Maria Schriver - Head of the Woman's Alzheimer's Movement. Lisa Genova - Still Allison People influential in the Alzheimers Field (Authors and Caregivers) Favorite Book, Movie, or Podcast: Favorite Podcast is Friends and Fiction Podcast. #sistersinlaw Contact them at: https://alzauthors.com/ --- Support this podcast: https://podcasters.spotify.com/pod/show/timothy-douglas0/support

Meet the Founders of AlzAuthors! In episode 73, my co-host, Don Priess, and I had the unique pleasure of speaking with the three co-founders of AlzAuthors.com. In 2016, our guests, Marianne Sciucco, Jean Lee, and Vicki Tapia, founded the non-profit AlzAuthors.com, a global community of over 300 writers who are writing all about dementia from their personal experience. This ever-growing global community is united in an effort to light the way for others, with a vision of lifting the silence and stigma surrounding Alzheimer's and other dementias through the sharing of personal stories.  If you're writing your own story or are thinking about it, this is a must see/hear episode! Regardless, you will be enriched by this dynamic trio who are truly Caregiver Crusaders! You can find out more about AlzAuthors on their Website and their podcast, Untangling Alzheimer's and Dementia. #writers #writer #podcast #experience #love #art #medical #nurse #community Support the show BEDSORE RESCUE - JEWELL NURSING SOLUTIONS: Home of the Patented Bedsore Rescue Positioning Wedge Cushions, Pads & Pillows (Use the PROMO CODE: NCFOP and All proceeds go to help fund the documentary NO COUNTRY FOR OLD PEOPLE.) SOCIAVI: Connecting Generations Made Simple - Globally - the simplest way for older adults and people with disabilities to connect and engage with their families and friends. There is no username, no password, no login, and no app to choose from. Just a dedicated device, the Sociavi C2M (Connect To Me) device that is always on and ready to use (When you signup for an annual subscription, All proceeds go to help fund the documentary NO COUNTRY FOR OLD PEOPLE.) No Country For Old People the documentary - MAKE YOUR TAX DEDUCTIBLE DONATE HERE Follow us on Twitter, FB, IG, & TiK Tok 

All Home Care Matters is honored to welcome Author and Co-Founder of AlzAuthors, Vicki Tapia.   Trained as an educator, Vicki Tapia has a proclivity for caring, spending over 30 years working as a Lactation Consultant teaching mothers and babies the art of breastfeeding. When both her parents were diagnosed with dementia (Alzheimer's and Parkinson's-related) within a few months of each other, she took on the role of caregiver. As a coping mechanism, Vicki kept a journal detailing the many challenges her family faced along the way. Over time, her diary became a roadmap of sorts, morphing into the award-winning memoir Somebody Stole My Iron: A Family Memoir of Dementia.   Whether fretting over her mother's false accusations that she was stealing their money to travel or coping with her father's missing eyebrows, Vicki writes with honesty and humor, offering both encouragement and insight. She shares the many lessons learned on the journey, bringing hope to those whose lives have been intimately affected by dementia, letting them know that they are not alone.   She is also the author of two other award-winning works, both historical fiction: Maggie: A Journey of Love, Loss and Survival based on the life of her intrepid great-grandmother, and her latest release, Harry and Grace: A Dakota Love Story written about her grandparents, who lived on the North Dakota prairie in the early 1900's.   Vicki is a founder and a director of the all-volunteer nonprofit, AlzAuthors.com. An ever-growing global community of over 350 authors, they share their personal stories, united in an effort to reduce the stigma and silence surrounding dementia.   AlzAuthors also produces an award-winning podcast Untangling Alzheimer's and Dementia: An AlzAuthors Podcast and most recently unveiled its newest initiative, the Custom Caregiver Collection. This collection brings table-top lending libraries, custom-filled with quality books, to places where people impacted by dementia gather.  

Meet the Founders of AlzAuthors! In episode 73, my co-host, Don Priess, and I had the unique pleasure of speaking with the three co-founders of AlzAuthors.com. In 2016, our guests, Marianne Sciucco, Jean Lee, and Vicki Tapia, founded the non-profit AlzAuthors.com, a global community of over 300 writers who are writing all about dementia from their personal experience. This ever-growing global community is united in an effort to light the way for others, with a vision of lifting the silence and stigma surrounding Alzheimer's and other dementias through the sharing of personal stories.  If you're writing your own story or are thinking about it, this is a must see/hear episode! Regardless, you will be enriched by this dynamic trio who are truly Caregiver Crusaders!You can find out more about AlzAuthors on their Website  and their podcast, Untangling Alzheimer's and Dementia.#writers #writer #podcast #experience #love #art #medical #nurse #communitySupport the showBEDSORE RESCUE - JEWELL NURSING SOLUTIONS: Home of the Patented Bedsore Rescue Positioning Wedge Cushions, Pads & Pillows (Use the PROMO CODE: NCFOP and All proceeds go to help fund the documentary NO COUNTRY FOR OLD PEOPLE.) SOCIAVI: Connecting Generations Made Simple - Globally - the simplest way for older adults and people with disabilities to connect and engage with their families and friends. There is no username, no password, no login, and no app to choose from. Just a dedicated device, the Sociavi C2M (Connect To Me) device that is always on and ready to use (When you signup for an annual subscription, All proceeds go to help fund the documentary NO COUNTRY FOR OLD PEOPLE.)No Country For Old People the documentary - MAKE YOUR TAX DEDUCTIBLE DONATE HEREFollow us on Twitter, FB, IG, & TiK Tok

Most busy caregivers don't have the time to read a book, so they go listen to a podcast. This is why podcasting is so essential, especially in the healthcare industry. Where do you go if you want to know more about a diagnosis? You look for a podcast. This is what Marianne Sciucco with AlzAuthors is doing for the Alzheimer's and Dementia group. Join Tracy Hazzard as she talks to her in this episode. Marianne is the host of Untangling Alzheimer's and Dementia, An AlzAuthors Podcast and the Author of Blue Hydrangeas: An Alzheimer's Love Story. Learn how Marianne is helping people who experience Alzheimer's and Dementia or know someone suffering from them share their stories to the world. Discover why podcasting is the best medium for this. Start spreading awareness today!Love the show? Subscribe, rate, review, and share!Here's How »Join the Binge Factor community today:FacebookInstagramLinkedInPinterestYoutubeTikTok

All Home Care Matters was honored to welcome the Co-Founder of AlzAuthors as a guest to the show, Jean Lee. Jean Lee worked full time teaching elementary school while she was thrust into a caregiving role for her mom and dad when they were dually diagnosed. Her memoir, Alzheimer's Daughter, follows two sisters–– Jean living a mile from her parents, and her sister living 1,000 miles away––through a near-decade journey as they work together to move their parents out of their life-long home, and eventually to a locked memory care facility. At the end of this hand in hand decline, the sisters are honored to be together as their parents breathe their last breath. Sadness and loss contrast with tenderness and devotion as Jean uses the elderly couple's WWII love letters, found during the final cleanout, as chapter beginnings. After the publication of Alzheimer's Daughter, Jean connected with other authors of Alzheimer's books, to co-found AlzAuthors.com with the goal of eliminating the stigma and silence often accompanying a diagnosis. AlzAuthors enables caregivers and those living with memory impairment to find written resources – memoirs, novels, nonfiction, children's books and caregiver guides – which educate and enlighten. AlzAuthors, a 501(c)3 nonprofit, is managed by six daughters of dementia and has posted weekly essays from over 300 authors with direct links to their books, all written from personal experience with Alzheimer's and dementia. Three years ago, they launched an award-winning podcast entitled Untangling Alzheimer's and Dementia: An AlzAuthors Podcast. Their newest initiative brings real books to real people in real places through Custom Caregiver Collections, placing handcrafted, table-top lending libraries in locations where people whose lives have been impacted by Alzheimer's and dementia gather.  

Marianne Sciucco is not a nurse who writes but a writer who happens to be a nurse, using her skills and experience to create stories that bear witness to the humanity in all of us. She writes contemporary, women's and young adult fiction. With more than 20-years' experience as a staff nurse and case manager, she's worked with countless families dealing with issues related to aging, elder care, Alzheimer's, and nursing home placement. In 2002, she put the two together and began writing about the intricate lives of people struggling with health and family issues. She published her debut novel, Blue Hydrangeas, an Alzheimer's love story, in 2013 to glowing reviews. This book led her to become a co-founder and director of AlzAuthors, the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. She is podcast producer and host for Untangling Alzheimer's and Dementia, an AlzAuthors Podcast. Marianne has written an award-winning prequel to Blue Hydrangeas called Christmas at Blue Hydrangeas and is currently working on A Wedding at Blue Hydrangeas. She is the author of Swim Season, a young adult novel based on her 11-years' experience as a Swim Mom in club, high school, and collegiate swimming. She has also written several short stories, including Ino's Love, Collection, and Birthday Party. All of her work is available in Kindle, audiobook, and paperback. When not writing she works as a campus nurse at a community college in New York's Hudson Valley. Follow Marianne on her blog MarianneSciucco.com, Twitter, Facebook, and LinkedIn, and visit AlzAuthors.com. #drdanamzallag, #drdanpodcast, #Happinessjourneywithdrdan, #ddanmotivation, #inspiringinterviews, #drdancbt, #drdantherapy, #drdancoaching, #drdanhappiness, #mariannesciucco, #alzheimerdisease, #dementia, #caregiver --- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app --- Send in a voice message: https://anchor.fm/happinessjourney/message Support this podcast: https://anchor.fm/happinessjourney/support

Support AlzAuthors at https://alzauthors.com/donate Please leave a review and share this podcast with a caregiver or loved one on a dementia journey. * * * About Laurette Klier Laurette Klier believes ENGAGEMENT + NOSTALGIA = JOY. She is the author of Nana's Books, heart-centered pairings of nostalgic literature and art, modified to meet the needs of seniors living with brain changes. Each book is carefully designed to bring you and your loved ones renewed connection, comfort, and joy. The books were inspired by her mother-in-law, Nana Mary, who loved big and passed with Lewy Body Dementia in 2021. Laurette's goal is to spearhead a national movement to create libraries within libraries of quality multimedia, multi-sensory engagement materials for people living with dementia. With a background in creating literacy environments for students in urban and priority schools, this work came naturally to her as she believes that people are best engaged via a holistic, literature, and arts-based approach. Now, as ever, she is focused on underserved communities and inclusion.  Nana's Books are the winner of a 2021 MAUDE'S AWARD for Innovation in Dementia Care and are endorsed by ALZ SPEAKS, ALZ AUTHORS and the Neurocognitive Community for their utility in person-centered care. In addition to creating these beautiful books, Laurette is also working on the Essential Caregivers Act of 2021 to ensure care partners unrestricted access to their loved ones in long term care, as COVID lockdowns and lack of uniform federal protections continue to devastate seniors and their families. Learn more here. In this episode, we discuss, how books and reading can provide meaningful interactions between family members and those living with dementia, the need that drove her to create these books, and how dementia changed her relationship with her mother-in-law for the better. Laurette Klier Creates Nana's Books: Nostalgic Picture Books for Seniors Preview Laurette's books at Issuu.com Purchase Nana's Books now! A sampling of titles: ·     Nostalgic Picture Book of Irish Wit & Wisdom: Large Format for People with Alzheimer's / Dementia ·     Love Poems for the Young at Heart: Large Format Book for People with Alzheimer's/Dementia ·     Jewish Proverbs for the Young at Heart: Large Format Book for People with Alzheimer's/Dementia ·     Nostalgic Picture Book of Babies ·     Fine Art Picture Book; Mother & Child: Gift Book for People with Dementia/ Alzheimer's ·     The Soul Remembers: Memory Care Spirituals ·     Nostalgic Picture Book of Living Dolls ·     Nostalgic Picture Book of Prayer Note: We are an Amazon Associate and may receive a small commission from book sales. Connect with Laurette Klier Website Instagram Twitter LinkedIn About the Untangling Alzheimer's and Dementia Podcast Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends in need of knowledge, comfort, and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. AlzAuthors.com Want to be on the podcast? Here's what you need to know.

This week, Rayna Neises, your host, speaks with Jean Lee. Jean was working full-time as a teacher when both of her parents were diagnosed with Alzheimer's. Her first book, Alzheimer's Daughter, is a memoir of her journey balancing her teaching responsibilities with her caregiving journey. Through her writing experience, she connected with other authors of Alzheimer's books and co-founded AlzAuthors.com. After seven years, the group is over 300 voices strong sharing personal experiences of their caregiving journey. Jean shares the following insights and information about the support available: (1:53)  Keeping a journal can help you talk about specifics and the frequency of behaviors. It can also help at doctor's visits and show a progression of the disease.(4:11)  Reading books about similar experiences can help you realize that you can survive the journey.(14:00)  When reading about others' journeys, although none of it is identical, we gain compassion for what somebody else is going through. The stories and books can also help light the way through your dark journey.(16:03)  AlzAuthors books are all written from personal experience/have a personal twist:  MemoirsCaregiver guidesFiction Children and TeensPoetry Quick ReadsArt(22:26)  AlzAuthors shares blogs offering support in the now. (23:09)  AlzAuthors has added a podcast, Untangling Alzheimer's, so people can listen on the go.(25:43)  Visit AlzAuthors.com to find the podcast, blog posts, and links to purchase books.

Support AlzAuthors at https://alzauthors.com/donate Please leave a review and share this podcast with a caregiver or loved one on a dementia journey. * * * About Laurette Klier Laurette Klier believes ENGAGEMENT + NOSTALGIA = JOY. She is the author of Nana's Books, heart-centered pairings of nostalgic literature and art, modified to meet the needs of seniors living with brain changes. Each book is carefully designed to bring you and your loved ones renewed connection, comfort, and joy. The books were inspired by her mother-in-law, Nana Mary, who loved big and passed with Lewy Body Dementia in 2021. Laurette's goal is to spearhead a national movement to create libraries within libraries of quality multimedia, multi-sensory engagement materials for people living with dementia. With a background in creating literacy environments for students in urban and priority schools, this work came naturally to her as she believes that people are best engaged via a holistic, literature, and arts-based approach. Now, as ever, she is focused on underserved communities and inclusion.  Nana's Books are the winner of a 2021 MAUDE'S AWARD for Innovation in Dementia Care and are endorsed by ALZ SPEAKS, ALZ AUTHORS and the Neurocognitive Community for their utility in person-centered care. In addition to creating these beautiful books, Laurette is also working on the Essential Caregivers Act of 2021 to ensure care partners unrestricted access to their loved ones in long term care, as COVID lockdowns and lack of uniform federal protections continue to devastate seniors and their families. Learn more here. In this episode, we discuss, how books and reading can provide meaningful interactions between family members and those living with dementia, the need that drove her to create these books, and how dementia changed her relationship with her mother-in-law for the better. Laurette Klier Creates Nana's Books: Nostalgic Picture Books for Seniors Preview Laurette's books at Issuu.com Purchase Nana's Books now! A sampling of titles: ·     Nostalgic Picture Book of Irish Wit & Wisdom: Large Format for People with Alzheimer's / Dementia ·     Love Poems for the Young at Heart: Large Format Book for People with Alzheimer's/Dementia ·     Jewish Proverbs for the Young at Heart: Large Format Book for People with Alzheimer's/Dementia ·     Nostalgic Picture Book of Babies ·     Fine Art Picture Book; Mother & Child: Gift Book for People with Dementia/ Alzheimer's ·     The Soul Remembers: Memory Care Spirituals ·     Nostalgic Picture Book of Living Dolls ·     Nostalgic Picture Book of Prayer Note: We are an Amazon Associate and may receive a small commission from book sales. Connect with Laurette Klier Website Instagram Twitter LinkedIn About the Untangling Alzheimer's and Dementia Podcast Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends in need of knowledge, comfort, and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. AlzAuthors.com Want to be on the podcast? Here's what you need to know.

This is the second in our Summer Book Series with HFC, aka Hilarity for Charity. In this session Daniel Potts, MD, FAAN, and his wife Ellen Potts joined us for a discussion of their helpful book A Pocket Guide for the Alzheimer's Caregiver. Daniel C. Potts, MD, FAAN is a neurologist, author, educator, and champion of those living with Alzheimer's disease and other dementias and their care partners. Selected by the American Academy of Neurology as the 2008 Donald M. Palatucci Advocate of the Year, he also has been designated an Architect of Change by Maria Shriver. In 2016, he was chosen by the University of Alabama Medical Alumni Association as a recipient of the Martha Myers Role Model Award, which honors physician alumni whose lives epitomize the ideal of service to their communities.  Along with his wife, Ellen W. Potts, MBA, he co-authored A Pocket Guide for the Alzheimer's Caregiver, which is recommended by the Alzheimer's Association, the American Academy of Neurology and Maria Shriver. Inspired by his father's transformation from saw miller to watercolor artist in the throes of dementia through person-centered care and the expressive arts, Dr. Potts seeks to make these therapies more widely available through his foundation, Cognitive Dynamics. Additionally, he is passionate about promoting self-preservation and dignity for all persons with cognitive impairment. He practices neurology at the Tuscaloosa VA Medical Center. Read Dr. Potts' AlzAuthors post: https://alzauthors.com/2017/02/21/meet-daniel-c-potts-physician-author-and-dementia-advocate/ Listen to Dr. Potts podcast on Untangling Alzheimer's and Dementia: https://alzauthors.com/podcast Start reading “A Pocket Guide for the Alzheimer's Caregiver” with Ellen Potts now!  https://amzn.to/3nP2IIB Additional books by Dr. Potts: “Finding Joy in Alzheimer's: New Hope for Caregivers,” with Marie Marley, https://amzn.to/2KIAi4h  “Treasure for Alzheimer's: Reflecting on experiences with the art of Lester E. Potts, Jr,” with Richard Morgan, Ph.D., https://amzn.to/3mBxjYr “Seasons of Caring: Meditations for Alzheimer's and Dementia Caregivers,” https://amzn.to/2LVFySH “The Unlatched Door: A Collection of Poetry,” https://amzn.to/37AZe6L “A Heart That Knows Your Name: Poetry Inspired by Persons Living with Dementia and Care Partners,” https://amzn.to/3nDWRFB “The Second Crossing: A Poetry Anthology,” https://amzn.to/3r8Ngc6 “At End of Day,” https://amzn.to/2KFznkX “Verses of Recovery,” https://amzn.to/2LOtFh7 “Soul Fire: Celebrating life and creation through word and image,” https://amzn.to/3p862i2 Note: We are an Amazon Associate and may receive a small commission from book sales. Connect with Dr. Potts Blog: https://danielcpotts.wordpress.com/ Facebook: https://www.facebook.com/daniel.potts.92372 Twitter: https://twitter.com/DanielCPotts LinkedIn: https://www.linkedin.com/in/danielcpotts/ Cognitive Dynamics: www.cognitivedynamics.org Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don't miss a word. If our authors' stories move you please leave a review. And don't forget to share our podcast with family and friends in need of knowledge, comfort and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening.

In our Season Three Premiere (wow!!), Episode 43,  Don and I talked with the force that is Marianne Sciucco -a registered nurse who's cared for hundreds of dementia patients over a 20-year career.  Her novel, Blue Hydrangeas, an Alzheimer's Love Story, is based on a couple she met through her work and is a testament to the power of love in the face of this heart wrenching disease. Marianne's tender work of fiction brings consolation and understanding to all who encounter Alzheimer's. Ironically, two years after her novel's publication, she started living her own story when her stepfather was diagnosed with mixed dementia: frontotemporal lobe, vascular, and Alzheimer's.  As his Health Care Proxy and Power of Attorney, she became his medical, legal, and financial representative. At the same time, she became the same to her mother, who was suffering from heart failure and dementia caregiver PTSD.  With her novel in place, it eventually morphed into her current project which is Alzauthors, a global community of over 300 writers who are writing about all dementia from their personal experience. She also launched her own podcast “Untangling Alzheimer's and Dementia: An AlzAuthors Podcast”Email  - mariannesciucco@gmail.comTwitterFacebookLinkedInSupport the show (https://www.patreon.com/preview/3feccac8decf451cbee818066461f7c1)

This is the second in our Summer Book Series with HFC, aka Hilarity for Charity. In this session Daniel Potts, MD, FAAN, and his wife Ellen Potts joined us for a discussion of their helpful book A Pocket Guide for the Alzheimer's Caregiver. Daniel C. Potts, MD, FAAN is a neurologist, author, educator, and champion of those living with Alzheimer's disease and other dementias and their care partners. Selected by the American Academy of Neurology as the 2008 Donald M. Palatucci Advocate of the Year, he also has been designated an Architect of Change by Maria Shriver. In 2016, he was chosen by the University of Alabama Medical Alumni Association as a recipient of the Martha Myers Role Model Award, which honors physician alumni whose lives epitomize the ideal of service to their communities.  Along with his wife, Ellen W. Potts, MBA, he co-authored A Pocket Guide for the Alzheimer's Caregiver, which is recommended by the Alzheimer's Association, the American Academy of Neurology and Maria Shriver. Inspired by his father's transformation from saw miller to watercolor artist in the throes of dementia through person-centered care and the expressive arts, Dr. Potts seeks to make these therapies more widely available through his foundation, Cognitive Dynamics. Additionally, he is passionate about promoting self-preservation and dignity for all persons with cognitive impairment. He practices neurology at the Tuscaloosa VA Medical Center. Read Dr. Potts' AlzAuthors post: https://alzauthors.com/2017/02/21/meet-daniel-c-potts-physician-author-and-dementia-advocate/ Listen to Dr. Potts podcast on Untangling Alzheimer's and Dementia: https://alzauthors.com/podcast Start reading “A Pocket Guide for the Alzheimer's Caregiver” with Ellen Potts now!  https://amzn.to/3nP2IIB Additional books by Dr. Potts: “Finding Joy in Alzheimer's: New Hope for Caregivers,” with Marie Marley, https://amzn.to/2KIAi4h  “Treasure for Alzheimer's: Reflecting on experiences with the art of Lester E. Potts, Jr,” with Richard Morgan, Ph.D., https://amzn.to/3mBxjYr “Seasons of Caring: Meditations for Alzheimer's and Dementia Caregivers,” https://amzn.to/2LVFySH “The Unlatched Door: A Collection of Poetry,” https://amzn.to/37AZe6L “A Heart That Knows Your Name: Poetry Inspired by Persons Living with Dementia and Care Partners,” https://amzn.to/3nDWRFB “The Second Crossing: A Poetry Anthology,” https://amzn.to/3r8Ngc6 “At End of Day,” https://amzn.to/2KFznkX “Verses of Recovery,” https://amzn.to/2LOtFh7 “Soul Fire: Celebrating life and creation through word and image,” https://amzn.to/3p862i2 Note: We are an Amazon Associate and may receive a small commission from book sales. Connect with Dr. Potts Blog: https://danielcpotts.wordpress.com/ Facebook: https://www.facebook.com/daniel.potts.92372 Twitter: https://twitter.com/DanielCPotts LinkedIn: https://www.linkedin.com/in/danielcpotts/ Cognitive Dynamics: www.cognitivedynamics.org Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don't miss a word. If our authors' stories move you please leave a review. And don't forget to share our podcast with family and friends in need of knowledge, comfort and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening.

Marianne Suicco is a registered nurse, dementia daughter, and author of the novel Blue Hydrangeas, an Alzheimer's love story. She is also a founding member and manager of AlzAuthors.com, the global community of authors writing about Alzheimer's and dementia from personal experiences. On Alzauthors.com you'll discover hundreds of inspirational stories which span all Alzheimer's and dementia stages to off you keen insights and better understandings of this insidious disease. Marianne also hosts and produces the popular Untangling Alzheimer's and Dementia podcast. Listen in and learn how Marianne and the entire team of contributors at AlzAuthors are creating Healing Ties all around us!

Marianne Suicco is a registered nurse, dementia daughter, and author of the novel Blue Hydrangeas, an Alzheimer's love story. She is also a founding member and manager of AlzAuthors.com, the global community of authors writing about Alzheimer's and dementia from personal experiences. On Alzauthors.com you'll discover hundreds of inspirational stories which span all Alzheimer's and dementia stages to off you keen insights and better understandings of this insidious disease.Marianne also hosts and produces the popular Untangling Alzheimer's and Dementia podcast.Listen in and learn how Marianne and the entire team of contributors at AlzAuthors are creating Healing Ties all around us!