Podcasts about global down syndrome foundation

Guest: Michelle Sie Whitten, Co-Founder, President & CEO Michelle started Global Down Syndrome Foundation because when she was pregnant with her daughter, she discovered that Down syndrome was the least funded genetic condition by our National Institutes of Health.  People with Down syndrome are born with three copies of chromosome 21, they're really highly at risk for certain disease, like Alzheimer's and autoimmune disease.  They're highly protected and it is very rare for a person with Down syndrome to get a solid tumor cancer or certain kinds of heart attack and stroke.  Global Down Syndrome Foundation is an international non-profit and one of their biggest successes has been the lobbying in Washington D.C.  They work with three affiliates, one being the C Center for Down syndrome Children's Hospital Colorado. They also support over 200 scientists between Anschutz Medical Campus and the University of Colorado Boulder through our Crnic Institute.  Coming up is the Be Beautiful Be Yourself Fashion show.  This year they are giving away two Quincy Jones exceptional Advocacy awards, one to Sophia Sanchez, she was in the prequel to the Hunger Games and the other is Woody Harrelson for his work in Champions.  The local ambassador this year is Zaya Biel.  The event is on November 16th at the Sheraton Denver Downtown Hotel.  https://bebeautifulbeyourself.org/

We humans, typically, have 23 pairs of chromosomes. Sometimes, for a variety of reasons, we have an extra chromosome or we are missing one. Down syndrome, also known as Trisomy 21, is a genetic disorder that occurs when an individual has a full or partial extra copy of their 21st chromosome. Down syndrome is the most frequent of the chromosomal disorders in humans, occurring in approximately 1 in 700 births in the US. With improved care of often life-threatening clinical challenges, individuals with Down syndrome are living much longer. In this month's podcast of Your Child's Brain we are going to talk about Down Syndrome and especially focus on how the increased lifespan of those with Down syndrome is impacting treatment and research for people living with this diagnosis.   Resources · Down Syndrome Association of Maryland (dsamd.org) · National Down Syndrome Society (ndss.org) · National Down Syndrome Congress (ndsccenter.org) · Global Down Syndrome Foundation (https://www.globaldownsyndrome.org) · LuMind IDSC Foundation (https://lumindidsc.org) · NIH – research plan across the LifeSpan - Project INCLUDE for co-occurring medical conditions (www.nih.gov/include-project) · Eunice Kennedy Shriver National Institute of Child Health and Human Development (nih.gov) · National Task Group on Intellectual Disabilities and Dementia Practices - Intellectual Disabilities and Dementia Resources | The NTG (the-ntg.org)See omnystudio.com/listener for privacy information.

David Egan is a leader and advocate who promotes the causes of people with disabilities. He is the first person with Down Syndrome to serve as a Joseph P. Kennedy Jr. Public Policy fellow on Capitol Hill and with the National Down Syndrome Society (NDSS). As a Special Olympics athlete and International Global Messenger, David has traveled extensively and speaks to diverse audiences, including the U.S. Senate, United Nations, and various universities, nonprofit and for-profit companies.  David has also received many awards throughout his career. He was honored by NDSS for his legacy, presented with the American Association for Intellectual Disabilities Media Award, and received the Global Down Syndrome Foundation's highest honor: the Quincy Jones Exceptional Advocacy Award. As the author of the book “More Alike Than Different: My Life with Down Syndrome,” he inspires his audiences to see our shared humanity and focus on abilities and possibilities rather than limitations.   During this episode, you will hear David talk about: Growing up with Down Syndrome, and his biggest dreams as a child How he learned to accept his disability What he enjoyed about working at Booz Allen Hamilton, CBRE, and SourceAmerica  His experience as a Joseph P. Kennedy Jr. Public Policy fellow How he became a disability advocate The impact of Special Olympics on his life  To learn more about David and his work, visit his website at DavidEganAdvocacy.com and buy his book, “More Alike Than Different: My Life with Down Syndrome.” Watch the video of this interview on YouTube. Read the episode transcript. Follow the Beyond 6 Seconds podcast in your favorite podcast player. Subscribe to the FREE Beyond 6 Seconds newsletter for early access to new episodes. Support or sponsor this podcast at BuyMeACoffee.com/Beyond6Seconds! *Disclaimer: The views, guidance, opinions, and thoughts expressed in Beyond 6 Seconds episodes are solely mine and/or those of my guests, and do not necessarily represent those of my employer or other organizations.*

In less than 15 years, the Global Down Syndrome Foundation has become a worldwide leader in research to extend the lives of people living with Down Syndrome. You'll hear from Michelle Sie Whitten how her and her family decided they wanted to make a difference and have taken an incredible, difficult, change-making journey that shows no signs of stopping. Thanks to Michelle and team at Global for having such an impact on an under-represented population. This podcast was brought to you by JC Charity Services – running a nonprofit is hard and I'd love to bolster your efforts and help you thrive. You can find me at www.makingourworldbetter.com. To learn more about and support the Global Down Syndrome Foundation, visit www.globaldownsyndrome.org, email them at info@globaldownsydrome.org and follow their social media feeds.  Until next time, I hope you are inspired to find a way to make the world better!

Friends, we know that seeing specialists and hearing your child could potentially have cardiac issues after receiving a prenatal diagnosis can all be overwhelming. We also know that while months of celebrating and advocating for awareness can be helpful, but also adds to those valid overwhelming feelings when you're new to a diagnosis. While those statistics are true, 50% of babies born with Down syndrome are born with heart defects. There are also incredible advancements in cardiology and amazing physicians like our guest this week Dr. Lorraine Schratz there for your family every step of the way! Dr. Schratz is a pediatric and fetal cardiologist at Massachusetts General for Children and an instructor at Harvard Medical School. She acknowledges the fear that comes with a diagnosis but emphasizes the advancements in medicine that have led to fewer follow-up surgeries for people with Down syndrome. Dr. Schratz stresses the importance of providing families with both medical facts and emotional support, tailoring information to their needs, and encouraging patients to ask as many questions as they need to. She shares her advice to create healthy habits for our kiddos with and without heart defects, what to expect when receiving a diagnosis, and recommends resources for support. We're so grateful for conversations like these, and in the words that Dr. Schratz's patients wanted to send us, “It'll be ok!”  --- SHOW NOTES NDSS (National Down Syndrome Society) The Heart And Down Syndrome American Heart Association (Dr. Schratz recommends using the health conditions tab for helpful resources and information) Global Down Syndrome Foundation (more information and resources on congenital heart defects) The Brett Boyer Foundation American Academy of Pediatrics: Down syndrome guidelines DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off! THANK YOU TO OUR SPONSOR: Thank you, Enable SNP for sponsoring this episode! 47. Planning for the Future w/Phillip Clark from Enable SNP 191. Future Planning for the WHOLE Family - ft. Phillip Clark, Enable SNP HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! LET'S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. --- Send in a voice message: https://podcasters.spotify.com/pod/show/theluckyfewpod/message Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

This is episode 2 of a 4 part series on constructing housing for I/DD adults! If you hear any background noise or laughter - that's because this podcast was recorded LIVE from the Nuts and Bolts Conference in Colorado Springs in November 2023! “It's always about people, and it's about leadership and guiding those people…It's about who's educating that team, who's guiding that team, who's leading that team so that decisions can be made timely.” Jim Shipton was born in the Midwest and raised in Story City, Iowa, the heartland as they call it. He loves being from a small town where you have an opportunity to participate in all aspects of life. Jim played football, basketball, golf and learned to work hard in the farming community. He completed one year of undergraduate civil engineering at Iowa State University before transferring to Colorado State University where he met his future wife and received a Bachelor of Science degree in Landscape Architecture. Upon graduation he and his wife, Denise, moved to the San Diego area for several years, gained valuable experience and his first license in 1992, before moving back to the Denver Metro area. He has been delivering his exceptional services to owners and developers in the western region of the US for the last 35 years. Currently he and his wife live in Littleton where they are trying to figure out how to become empty nesters. Jim enjoys outdoor activities, skiing, golfing, camping and all things Ford Bronco. Greg Krause is a co-founder and principal of K2 Residential Solutions.  With over 22 years of construction management experience, Greg heads up K2's Business Development and Pre-Construction efforts. Prior to establishing K2 Residential Solutions in 2015, Greg led the construction efforts of K2's affiliate company, Metropolitan Homes, Inc. from 2001-2014.  Krause has been active on the boards of both the Home Builders Association of Metro Denver and the Construction Education Foundation.  He is also very involved in philanthropic endeavors including long-standing relationships with the Global Down Syndrome Foundation, Children's Hospital, and Trailhead Community. Krause is a native of Colorado, residing in Metro Denver his entire life, with the exception of his undergraduate studies at the University of Washington where he competed as a member of the UW Crew.  Gre­g continued with his competitive athletic pursuits after college as a professional triathlete and cyclist.  Greg trained and raced the Ironman Hawaii, Cape Epic, La Ruta, and the Leadville 100 to name a few.  He currently lives in Jefferson County with his wife and daughter.  The Krause's enjoy spending family time in the great outdoors skiing, hiking, and cycling.  Learn more about Jim's work at www.pnt-llc.com Follow Jim on LinkedIn: https://www.linkedin.com/company/point-consulting-llc Visit K2's website: https://www.k2rs.com/ Learn more about the Trailhead Community: https://www.trailheadcommunity.org/

Guest: Craig McIlroy Denver Lead The Light the World Giving Machines came to Denver in 2019.  The Light the World Giving Machines are vending machines for charity, you can buy an item for someone in need.  You decided on the amount you want to spend and the item. This year they are working with five local non-profits and two global non-profits.  This year the local non-profits they are working with the Colorado Hosting Asylum, The Delores Project, Global Down Syndrome Foundation, and Volunteers of America.  The two International charities are Church World Service, American Red Cross.  They are located on Cherry Creek North and will be there from November 16 until December the 24th and 100% of the donations go to that charity.    https://givingmachinesdenver.org/

Guest: Michelle Sie (See) Whitten, Co-Founder, President & Ceo, Global Down Syndrome Foundation Michelle started the Global Down Syndrome Foundation in 2009 with her parents because her daughter Sophia has down syndrome.  Their focus is on research and medical care. When a person is born with down syndrome, they have three copies chromosome 21 instead of 2.  In the 1980’s the average life span of a person with down syndrome was 28 and today it is 60.  The Global Down Syndrome Foundation has donated more than $32 million to establish the first Down syndrome research institute supporting over 400 scientists and over 2,200 patients with Down Syndrome From 33 States And 10 Countries.  Coming Up On November 18th Is The 15th Be Beautiful Be Yourself Fashion Show.  There are a handful of tickets left.  Another way to support is to sponsor a model.     www.globaldownsyndrome.org www.bebeautifulbeyourself.org

Michelle Sie Whitten from the Global Down Syndrome Foundation joined the podcast today as part of our "Meet the Nationals" series.   For more information on Global Down Syndrome Foundation https://www.globaldownsyndrome.org Prenatal & Newborn Pamphlet: https://www.globaldownsyndrome.org/prenatal-testing-pamphlet/ GLOBAL Adult Healthcare Guideline: https://www.globaldownsyndrome.org/medical-care-guidelines-for-adults/ If you have a podcast topic you would like us to address, please send an e-mail to DownSyndromeCenter@chp.edu.  If you would like to partner with the Down Syndrome Center and the work that we do, including this podcast, please go to https://givetochildrens.org/downsyndromecenter. Thank you to “Caring for Kids” The Carrie Martin Fund for its support of the Down Syndrome Center Podcast. 

Guest: Michelle Sie Whitten, Co-Founder, President & CEO Global Down Syndrome Foundation started in 2009 after Michelle's daughter was born with the goal to focus on research and medical care. Down syndrome is when a child with born with three copies of chromosome 21 and not two.  People with Down syndrome are highly predisposed to autoimmune disease and Alzheimer.  On the protection side, it would be rare for someone with Down syndrome to get a solid tumor the exception being testicular.  The Be Beautiful Be Yourself Fashion Show is coming up on November 12th.  It is the largest fundraise for people with Down syndrome in the world.  It features 20+ models who rock the run way and they are escorted by celebrities.  www.bebeautifulbeyourself.orgSee omnystudio.com/listener for privacy information.

This week, we are joined by Caterina Scorsone - Mom, qualified doula and star of Shondaland's Grey's Anatomy, for an extraordinarily powerful episode that is an absolute must listen. Caterina opens up about how her attempts as a teenager to 'out' a sexual predator in the entertainment industry were ignored and the subsequent gaslighting. We also discus the enlightenment that came to her becoming a Mother to three beautiful daughters, one with Down Syndrome..If you'd like to know more about Down Syndrome and support Caterina's work in this space, please go to the Global Down Syndrome Foundation https://www.globaldownsyndrome.orgCATERINA SCORSONE image credit: Caroline Lee. IG: @howcarolinecarolines .This episode has been kindly supported by abc ivf, the UK's lowest-cost IVF clinic. Fertility preservation at the right age is a not an easy decision and there are multiple reasons women choose to do so – but for many the price can be a huge hurdle. abc ivf want to make egg freezing an option to as many women as possible – not just those with deep pockets. If you are 37 or under, an all-inclusive egg freezing package costs £3,595 – which includes everything you need including medication and the first year's storage. If you've been thinking about taking control of your fertility, why not book an assessment with abc ivf so you can better understand your fertility health and plan for your future. Just go to www.abcivf.co.uk and book you're fertility assessment now. Thats www.abcivf.co.uk.The Happy Vagina podcast is produced by Pineapple Audio Production and in association with AllBright, the leading career network for women. Got a mission, a five-year plan or an outrageous dream? AllBright will have your back. Visit AllBright to join their free community today or download the AllBright app. ALLBRIGHT - A GLOBAL SISTERHOOD FOR AMBITIOUS WOMEN. Our GDPR privacy policy was updated on August 8, 2022. Visit acast.com/privacy for more information.

Amanda Booth is an actress, model, and mama based in Los Angeles. She has appeared on network television shows such as Hot In Cleveland, Maron, and Community. Her campaign work includes advertisements for Lancome, Fiat, Hersheys, Target, and Old Navy. Her focus has broadened since becoming a mother in 2014 to a son with Down Syndrome. Amanda is now an ambassador for Changing The Face Of Beauty and Global Down Syndrome Foundation as well as a social media advocate.@Amanda_booth@LifewithMicah If you were moved by this episode and want to give back, below is an amazing charity changing lives of so many families and individuals living  with Down Syndrome, please donate today!https://www.globaldownsyndrome.org/Support the show (https://pod.fan/the-dude-therapist)

Renee interviews John C. McGinley about Brooklyn Nine-Nine, Scrubs, Special Olympics and Global Down Syndrome Foundation's Be Beautiful Be Yourself Fashion Show

Mike Wooldridge explores another story of faith and hard decisions. When American Beth Ball was pregnant with her first child, she found out that the baby had Down’s syndrome. Upon receiving the diagnosis, she says she was shocked at the heavy hints that she should terminate the pregnancy, and outdated information made available. For Beth and her husband Stephen, both Christians, the next months were a struggle, emotionally and spiritually. At one point, Beth prayed that if she was unable to cope with a baby with Down’s syndrome, God would take it away. But then things were to change for the Ball family, and several times. Alongside Beth and Stephen, Mike hears from Dr Francis Hickey, an expert in Down’s syndrome, Michelle Sie Witten, President of the Global Down Syndrome Foundation, their Pastor Bill Cahoun, and the family of Jack Holm, a young man with Down’s syndrome who inspired them to re-imagine the future. Producer: Paul Arnold (Photo: DNA helix illustration. Credit: Getty Images)

We touched on some sensitive situations for this week's show on different levels. While the Boseman family has been mourning the unfortunate passing of their loved one, Chadwick, they are also celebrating a win for his brother, Kevin Boseman. Earlier this month, Kevin took to Instagram, revealing that he too had been diagnosed with cancer, but is happy to be in remission. Similar to Chadwick, Kevin said he initially did not share the news publicly, but felt this time of remission is something “to smile about” in a year full of so much tragedy. Chadwick Boseman was diagnosed with stage 3 colon cancer in 2016 and still went on to give us some of the biggest films in black history, including Black Panther and Marshall. Chadwick’s final appearance all be in Ma Rainey’s Black Bottom, which is set to debut on Netflix on December 18th. Blessings to their family! On another unfortunate note, Hollywood actor Jamie Foxx's younger sister DeOndra Dixon who was only 36 years old. Dixon was named the Ambassador for the Global Down Syndrome Foundation in 2011 who also suffered with the disease. Our condolences and prayers go out to Jamie! Wow...it just don't stop. Dancehall star Beenie Man is reportedly recovering in a hospital after he fainted during his mother's funeral. A video was shared online, showing Beenie Man fainting into the arms of several men during the ceremony. Beenie's mother, Lilieth Sewell, suffered a stroke back in July and was hospitalized at the University Hospital of the West Indies for approximately two months. After her discharge, she passed away a few weeks later. She was 63. More prayers for Beenie man! FINALLY...on a lighter note, last week, rapper Saweetie started a viral social media debate about the Birkin, and a few well known celebrities weighed in. Many social media users began arguing that not everyone can afford Birkin bags, hitting back at Saweetie for claiming that men should be able to buy their girlfriend or wife the $15,000 bag. Another debate began circling social media about race and the ability for black rappers to afford numerous luxury handbags. This is based on the person and really what that person means to you.  It's been a minute since music fans have settled in for a new Verzuz battle, but it's time to get ready for the next showdown: T.I. vs. Jeezy. The Atlanta rappers will face off on Thursday, Nov. 19, at 5 p.m. PT/8 p.m. ET on Instagram and Apple Music. This will be a difficult one? For the "HOT TAKE" topic this week the crew discussed 'why is it easy to meet the one...but not tie the knot?' Drop a comment on your thoughts!

Conversations about inclusion often talk about race and diversity, but one topic that people often leave off the table is ability. In honor of Down Syndrome Awareness Month, Michelle Sie Whitten, the President and CEO of the Global Down Syndrome Foundation, and her daughter, Sophia Whitten, who has Down Syndrome, joined Parenting Impossible to discuss the meaning of true inclusion for people with Down Syndrome and other disabilities in society, research, education, and more.  As the topic of diversity becomes more widespread, people with disabilities tend to be “featured” for their disabilities rather than being included as whole, unique human beings. Sophia and Michelle talk about Down Syndrome as only one small part of a person’s identity, not their entire identity  With this language in mind, one of the Global’s initiatives is to fund and support research that benefits people with Down Syndrome. The Foundation has donated more than $32 million to establish the first Down Syndrome research institute, supporting over 400 scientists and over 2,000 patients with Down syndrome from 28 states and 10 countries. The Foundation also has several medical publications including Global Medical Care Guidelines for Adults with Down Syndrome, which was recently released after four years of research.  People who have Down Syndrome are more likely to develop Alzheimer’s, certain types of Leukemia, autoimmune diseases, and other health complications, and this research is an important part of the efforts needed to give these individuals a better quality of life for a longer period of time. This work is especially important during the pandemic, as people with intellectual and developmental disabilities are at high risk.  To support this research as well as its outreach efforts during the pandemic, the Global Down Syndrome Foundation continues to raise money. The Foundation’s largest fundraiser and the largest fundraiser for Down Syndrome in the world, the “Be Beautiful Be Yourself” Fashion Show, will be a virtual event this year on Saturday, Nov. 14, 2020. Sophia will be participating with several others as a model, and several celebrities will perform, including Jamie Foxx and his sister Diondra Dixon, as well as Amanda Booth and Qunicy Jones. You can join this event by visiting the website. Tickets are $25 and will support the Foundation’s mission.  You can connect with the Global Down Syndrome Foundation on Facebook, Instagram, Twitter, and LinkedIn.  Annette Hines has been practicing in the areas of Special Needs, Elder Law, and Estate Planning for more than 20 years. Ms. Hines brings personal experience with special needs to her practice and podcasts as the mother of two daughters, one of whom passed away from Mitochondrial disease in November 2013. This deep, personal understanding of special needs fuels her passion for quality special needs planning and drives her dedication to help others within the special needs community. 

After giving birth to her daughter with Down Syndrome, Michelle Sie Whitten noticed a gap in medical research and quality healthcare for people with DS. And from that moment on, she sought to fill that gap by co-founding the Global Down Syndrome Foundation -- the leading organization dedicated to research, medical care, education, and advocacy for people rockin' an extra chromosome! We're so grateful to have her on the podcast for a conversation about the beginning of Global, the “Be Beautiful Be Yourself” fashion show, DS in the media, and so much more! Be sure to check out all things Global Down Syndrome by visiting globaldownsyndrome.org or emailing info@globaldownsyndrome.org with your medical/research questions. __ Connect with the Global Down Syndrome Foundation Website Instagram Facebook Be Beautiful Be Yourself Fashion Show happening on November 14! Covid-19 and Down Syndrome Email info@globaldownsyndrome.org with your medical / research questions! Learn more about Michelle Sie Whitten here. LET'S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. SPONSOR: JONAS PAUL EYEWEAR Jonas Paul Eyewear makes stylish glasses for kids and teens! We're sure you'll love them just as much as our families do! The frames even perfectly fit our kiddos with Down Syndrome thanks to their unique adjustable tips. Head on over to jonaspauleyewear.com and use code THELUCKYFEW15 for 15% off your order! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! --- Send in a voice message: https://anchor.fm/theluckyfewpod/message Support this podcast: https://anchor.fm/theluckyfewpod/support

Anyone else feeling more uncertain about the upcoming school year than ever before? We know we are! That's why we have Dr. Spinazzi back on the show for a special episode about her insights into Covid-19 and her thoughts on sending kids to school in the middle of this pandemic. Not only is she a physician and professor, Dr. Spinazzi is the medical director of Charlie's Clinic, a Down Syndrome specific clinic in Oakland, CA. We are so grateful for her infinite wisdom and her heart for our kiddos. Join us for a chat about classroom safety, school precautions, the risks and benefits of distance learning, + so much more. And whatever the school year looks like for you and your family, we are cheering you on. __ Learn more about Charlie's Clinic, where Dr. Spinazzi works and follow them on Instagram @oaklanddownsyndromeclinic Check out UCSF's Youtube channel for weekly Covid-19 updates Read a Q & A on Covid-19 and Down Syndrome by Down Syndrome Medical Interest Group, Global Down Syndrome Foundation, National Down Syndrome Congress, National Down Syndrome Society, National Task Group on Intellectual Disabilities, and Down Syndrome Foundation LET'S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! --- Send in a voice message: https://anchor.fm/theluckyfewpod/message Support this podcast: https://anchor.fm/theluckyfewpod/support

Behind every beloved character from film or television is an actor or actress that pours their heart, soul and personal experience into its creation. Welcome to The Darin Olien Show. On this podcast, you’ll hear me, Darin Olien, “the superfood hunter,” have inspiring and enlightening conversations with extraordinary people from all walks of life. Although our ideas and approaches to life may differ, our ultimate goal is the same- to save the planet one conversation at a time. If you’re interested in expanding your view of the world by learning new perspectives on health, nutrition and healing the planet, and want to learn more about society’s Fatal Conveniences™- the things we may be doing because the world we live in makes us believe we have to, even though they may be doing harm- then this is the podcast for you. My guest for this week’s episode is probably one of the most genuine, unique people I know, John C. McGinley. John has been in dozens and dozens of hit films like Platoon, Point Break, Wall Street and The Rock. He’s even shown his Broadway chops in plays like Glengarry Glen Ross. But perhaps his best-known role was as the loveable, but scary, Dr. Perry Cox on the TV show Scrubs. What you may not know is that inspiration for Dr. Cox’s hidden heart of gold, as well as distinctive traits of other characters John has played, comes from his relationship with his son Max. Max was born with Down Syndrome and completely changed John’s life in ways he never imagined. Being a father to Max and daughters Billie and Kate is and will always be his most cherished role. During this epic conversation, John and I discuss his current roles as an ambassador for the Global Down Syndrome Foundation and the Special Olympics. We get into what being involved with these awesome organizations has taught him about life and the human spirit. We also get to hear some hilarious behind the scenes stories of John’s long, impressive career. But don’t worry, this isn’t some stuffy Hollywood guy bragging about his accomplishments. This is a down to earth, ridiculously thoughtful guy gushing about the gratitude he has for the amazing opportunities he’s had in life. Highlights from my amazing conversation with Johnny: John’s hilarious Edger Allen Poe soundcheck How having a special needs son has completely changed his outlook on life How John carries Max with him to every set Why John picks Down Syndrome organizations that don’t just focus on “the Kumbaya” What it means to live in gratitude The Spread the Word to End the Word Initiative and how it came about The adorable story of how Max introduced John to his wife Why John juggles when he’s memorizing lines John’s advice for new actors This episode’s Fatal Convenience™: Plastic Links: Global Down Syndrome Foundation Special Olympics Spread the Word to End the Word Linda Crnic Institute for Down Syndrome John on Twitter   Download Darin’s amazing new lifestyle app and get 3 days free at 121Tribe.com Barukas Nuts 15% discount with code “DARIN”   The Darin Olien Show is produced by the team at Must Amplify. If you’re looking to give a voice to your brand and make sure that it’s heard by the right people, head to www.mustamplify.com/darin to see what Amplify can do for you.

“Stay home, wash your hands, don't touch your face….” you've heard it all before. But now you can hear from pediatrician Dr. Noemi Spinazzi, who specializes in Down Syndrome! She works at a children's hospital in Oakland, CA and is the medical director of Charlie's Clinic - a Down Syndrome specific health care center! Today we're asking her about all things health and Down Syndrome from special Covid-19 precautions, medical myths, speech, pneumonia, hearing, and more! Dr. Spinazzi also shares what it's like to be a doctor in our Covid-19 world and how we can all support medical professionals, hint: stay home! (if possible). Speaking of whom, thank you so much to all of you out there who are working hard to keep everyone safe, including our extra at-risk kiddos with Down Syndrome. We see you and appreciate you so much! Alright friends, grab your pens and paper (you'll want to take notes on this one) and enjoy! ___ SHOW NOTES Learn more about Charlie's Clinic, where Dr. Spinazzi works and follow them on Instagram @oaklanddownsyndromeclinic Read Q & A on Covid-19 and Down Syndrome by Down Syndrome Medical Interest Group, Global Down Syndrome Foundation, National Down Syndrome Congress, National Down Syndrome Society, National Task Group on Intellectual Disabilities, and Down Syndrome Foundation Check out the other Covid-19 resources that we mentioned: Protecting Your Family From Covid-19 by Dr. David Price Dr. Fauci Answers Trevor's Questions About Coronavirus LET'S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! CHECK OUT HEATHER'S NEW BOOK Scoot Over and Make Some Room: Creating a Space Where Everyone Belongs by Heather Avis is NOW available on Amazon. Head to Youtube and subscribe to The Lucky Few's NEW Channel: In Search of The Lucky Few. Click here to start watching now! --- Send in a voice message: https://anchor.fm/theluckyfewpod/message Support this podcast: https://anchor.fm/theluckyfewpod/support

In this episode we talk to Erin Book Mullen about being a DC Lobbyist who works to increase funding for Down syndrome research. Erin led the effort with the Global Down Syndrome Foundation to secure the first-ever Congressional hearing on Down syndrome research where Frank Stephens declared that his life was worth living.  That testimony, along with their work with Congressional Champions, resulted in a historic and significant 65% increase of Down syndrome research funding at the National Institutes of Health (NIH) from $35 million in FY2017 to $58 million in FY2018. In addition, we talk with Erin about raising two girls, one of whom has Down syndrome and has battled with childhood Leukemia. Check out the show notes by visiting https://hopestory.org/erin-book-mullen/ep-4

Michelle Sullivan is the advocate behind Littlest Warrior, a platform inspired by her son, Eli. Before Michelle gave birth to her son Eli, she didn't know much about the amazing Down Syndrome community. Now, after giving birth to a child with Down Syndrome, she has been welcomed into this warm and friendly community, and has enjoyed learning everything she can about it. October is Down Syndrome Awareness Month, which made it perfect to have Michelle on the podcast. Kelly and Michelle discussed Eli's incredible story, how she has worked to create an impact in the Down Syndrome community, and how to get involved in spreading awareness. Michelle shared some of her favorite organizations to check out if you are interested in being more involved in the initiative. She suggests the Down Syndrome Diagnosis Network, Ruby's Rainbow, Global Down Syndrome Foundation, and Letter Case. It was great to hear about resources from a trusted source, and you can view the links to these organizations below. Thank you so much for being on the show, Michelle! I loved hearing about your mission and passion. Enjoy the episode, everyone!We've got swag! Buy Old Towne Orange merchandise, mugs, hats, clothes and more!https://shop.iheartoldtowneorange.com/BECOME A PATRON!Do you love A Circle in a Square podcast? Then I would love for you to become a more involved participant in this little community I have created. I put together a plan on Patreon with a few levels of involvement (that all involve a super cute custom-made sticker)! Take a look at our Patreon to see how to get the inside scoop that we don't give anyone else.https://www.patreon.com/iheartFind Michelle's blog, Littlest Warrior + more!Website: https://www.littlestwarrior.com/Facebook: https://www.facebook.com/littlestwarrior/Instagram: https://www.instagram.com/littlest_warrior/Personal Instagram: https://www.instagram.com/meeshellsullivan/Michelle's Podcast, Advocate Like A Mother: https://www.advocatelikeamother.org/Apparel: https://www.littlestwarrior.com/collections/allChildren's Book: https://amzn.to/35eG3fzSee how Eli inspired an entire clothing brand in this YouTube video:https://www.youtube.com/watch?v=LLJG-U1cZAoMore Resources:DSDN: https://www.dsdiagnosisnetwork.org/Ruby's Rainbow: https://rubysrainbow.org/Global Down Syndrome Foundation: https://www.globaldownsyndrome.org/Letter Case: https://www.lettercase.org/Follow US On Social Media!Website (Sign Up for our Newsletter): http://iheartoldtowneorange.com/Facebook: https://www.facebook.com/IHeartOldTowneOrange/Instagram: https://www.instagram.com/iheartoldtowneorange/Twitter: https://twitter.com/iheartotorangeThank you, everyone, Support the show (https://www.patreon.com/iheart)

Hi friends! Welcome back to Season Three, Episode Two of The Lucky Few Podcast. Today, we're chatting with Amanda Booth, an actress, model, and mama based in Los Angeles. She has appeared on network television shows such as Hot In Cleveland, Maron, and Community. Her campaign work includes advertisements for Lancome, Fiat, Hersheys, Target, and Old Navy. Her focus has broadened since becoming a mother in 2014 to her son Micah, who has Down Syndrome. Amanda is now an ambassador for Changing The Face Of Beauty and Global Down Syndrome Foundation as well as a social media advocate. She and Micah work hard to represent the Down Syndrome community on the playground, Instagram, and even magazine covers like Vogue and Anthropologie! But you don't have to be a model or an actress to own your influence. Amanda believes that whether it's a trip to the park or an audition, the most important part is showing up. Join us as Amanda shares her journey into the modeling industry, her son's unique diagnosis story, and the way Down Syndrome transformed her career and helped her achieve her dreams. SHOW LINKS Follow Amanda and Micah on Instagram! Check out Global Down Syndrome Foundation and the work they're doing to provide current information to families with a prenatal Down Syndrome diagnosis. Changing the Face of Beauty works hard to include models with different abilities in mainstream advertisements. Learn more about them here! Read The Prince Who Was Just Himself. SHOW SPONSOR Jonas Paul Eyewear PROMO CODE: theluckyfew for 15% OFF your purchase at jonaspauleyewear.com CHECK OUT HEATHER'S NEW BOOK Scoot Over and Make Some Room: Creating a Space Where Everyone Belongs by Heather Avis is available for pre-order on Amazon. Head to Youtube and subscribe to The Lucky Few's NEW Channel: In Search of The Lucky Few. Click here to start watching now! --- Send in a voice message: https://anchor.fm/theluckyfewpod/message Support this podcast: https://anchor.fm/theluckyfewpod/support

In this special interview, Steve & Izzy are joined by the great John C. McGinley, star of "Stan Against Evil", "Scrubs", "Platoon", "The Rock" and more!!! What happens when Steve mispeaks in his usual interview style? Will Johnny C put him in his place? Find out how a real man gets interviewed!!!   More importantly, Mr. McGinley is also a board member with the Global Down Syndrome Foundation and you can help by donating to the cause and help others!!!   Global Down Syndrome Foundation - www.globaldownsyndrome.org   Twitter - www.twitter.com/eilfmovies Facebook - www.facebook.com/eilfmovies Instagram - www.instagram.com/eilfmovies Etsy - www.untidyvenus.etsy.com

This week, we're thrilled to chat with the one and only John C. McGinley! McGinley is one of those actors who seems to have been in everything, including at least one of your favorites. He's had supporting or starring roles in Platoon, Wall Street, Point Break, Office Space, Any Given Sunday, and 42, among so many others. Plus, he was the phenomenally scene-stealing Dr. Cox on nine seasons of Scrubs. And he's currently starring as the title character on IFC's Stan Against Evil. On this episode, we talk about his introduction to "comic-con culture," the creative freedom that being a producer on Stan provides, whether breaking into the industry with films such as Platoon and Wall Street set up unrealistic expectations, how much he has become an amalgamation of his many characters, and his work with the Global Down Syndrome Foundation.

Kevin Meyers and Aaron Westendorf discuss the push for the Clark Cup Playoffs and the many scenarios that could play out over the final two weeks of the regular season. 2017 NHL Draft prospect Eeli Tolvanen joins the show to talk about his hockey upbringing, Sioux City's win streak, and playing college hockey with teammate and countryman Aapeli Rasanen. Bloomington Thunder goaltender Logan Halladay also stops by to discuss the raffle for his mask at the end of the season to raise money for the Global Down Syndrome Foundation and the Special Olympics. Headquartered in Chicago, Illinois, the USHL celebrates its 15th season as the nation's only Tier I junior hockey league in 2016-17.  30 or more players from the USHL have been selected in four consecutive NHL Drafts,  and more than 400 players on team rosters last season committed to NCAA Division I schools, further establishing the USHL as the world's foremost producer of junior hockey talent.

Michelle Sie Whitten is the Co-Founder, President and CEO of the Global Down Syndrome Foundation (Global). Global is dedicated to significantly improving the lives of people with Down syndrome through research, medical care, education, and advocacy. Ms. Whitten will discuss the mission of the foundation and her other work associated with Down syndrome.

Michelle Sie Whitten is the Co-Founder, President and CEO of the Global Down Syndrome Foundation (Global). Global is dedicated to significantly improving the lives of people with Down syndrome through research, medical care, education, and advocacy. Ms. Whitten will discuss the mission of the foundation and her other work associated with Down syndrome.

This week on Mom Talk Radio, Mary Reckmeyer, Ph.D., author of Strengths Based Parenting: Developing Your Children’s Innate Talents, shares how parents can empower their kids talents. Spotlight on Moms features Marge Gerwels of TinyBitsOfMagic.com. Film and television producer and author of Moms for Hire, Deb Newmyer, shares inspiring moms’ stories. Michelle Sie Whitten, co-founder, president and CEO of the Global Down Syndrome Foundation, shares info about the Be Beautiful Be Yourself fashion show.

Special Guest: David Charmatz, SVP of the Global Down Syndrome Foundation.Charmatz oversees marketing, public relations, research and analysis for Global, and his top priorities will be growing the personnel and revenue in order to better serve the needs of people with Down syndrome nationally and internationally. Before joining Global full-time, Charmatz was a consultant assisting with the launch of Down Syndrome World magazine and Global’smonthly electronic newsletter, and with the planning of a second edition of the Down Syndrome Prenatal Testing Pamphlet. The Global Down Syndrome Foundation is a public non-profit 501(c)(3) dedicated to significantly improving the lives of people with Down syndrome through Research, Medical Care, Education and Advocacy. www.globaldownsyndrome.org