Parenting Impossible – The Special Needs Survival Podcast

As many of you know, this time of year is always layered for me. Mother's Day brings both sweet memories and aching absences. In this episode of Parenting Impossible, I open up about my own motherhood journey. I've lived through the joy of raising two incredible daughters, and I've lived through the unimaginable grief of losing one of them. I wanted to share a few things I've learned along the way—things I wish I'd known when I was in the thick of it. To those of you parenting children with disabilities, caring for aging parents, or simply doing your best to hold it all together: I see you. You are not alone. And whatever Mother's Day looks like for you this year, I hope you find a moment to honor the incredible work you're doing. In this episode, you will hear: It's okay if motherhood doesn't feel magical all the time. A shift can come when you least expect it. Choose joy where you can.   Engage with us: 25% off any courses, masterclasses, and minisodes in Special Needs Academy here Join our community: Circle of Care Visit:  https://annettehines.com Read Butterflies and Second Chances LinkedIn: @annette-hines-snc  Instagram: @parentingimpossible Facebook: @SpecialNeedsCompanies Twitter: @SpecialNeedsCo   Follow and Review: We'd love for you to follow us if you haven't yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We'd love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.  

When it comes to protecting a loved one with disabilities, few decisions are as overwhelming as choosing the right trustee. But in a world of nonprofit pooled trusts, legal jargon, and alarming headlines about financial misconduct, how do you separate peace of mind from potential pitfalls? In this episode of Parenting Impossible, I break down everything you need to know about Pooled Special Needs Trusts, from how they work to when they make sense. I share hard-earned wisdom as both a lawyer and a special needs parent, guiding you through what questions to ask, how to vet your options, and why sometimes the best Trustee choice isn't family, but a professional with heart and structure. You'll walk away not just more informed, but more empowered. In this episode, you will hear: What a Pooled Trust actually is, and who should consider one. The difference between First-party and Third-party Special Needs Trusts. What went wrong in the recent $100M nonprofit scandal (and how to avoid it). Why transparency, independence, and communication are non-negotiable.   Engage with us: 25% off any courses, masterclasses and minisodes in Special Needs Academy here Join our community: Circle of Care Visit:  https://annettehines.com Read Butterflies and Second Chances LinkedIn: @annette-hines-snc  Instagram: @parentingimpossible Facebook: @SpecialNeedsCompanies Twitter: @SpecialNeedsCo   Follow and Review: We'd love for you to follow us if you haven't yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We'd love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.  

Caring for a child with disabilities isn't just a full-time job, it's a deeply personal, emotional, and often isolating journey. What if the support parents need wasn't just about filling a shift, but about building a relationship? In this episode of Parenting Impossible, Annette Hines sits down with Susan Asay, founder of Apex Social Exchange Foundation, to talk about what it really means to find care you can trust. Susan shares her own story of juggling a demanding career, raising young kids, and desperately trying to find someone who could not only help, but understand. That search led to a program connecting families with compassionate, live-in care professionals trained to support children with complex needs. Building a more inclusive world starts in the home, and with the right support, parents don't have to do it alone.   In this episode, you will hear: Why the person caring for your child should be a true partner in their development.  How to find someone qualified and emotionally ready to support a child with disabilities full-time. Ways international caregivers fill the critical gap in America's special needs childcare system. Why matching personalities just as important as matching skills when it comes to live-in care. Resources from this Episode: Website: https://apex-social.org/ Instagram & TikTok: @apexsocial LinkedIn:@apex-social YouTube: @apexsocial1 Facebook: @apexsocial.org   Engage with us: 25% off any courses, masterclasses and minisodes in Special Needs Academy here Join our community: Circle of Care Visit:  https://annettehines.com Read Butterflies and Second Chances LinkedIn: @annette-hines-snc  Instagram: @parentingimpossible Facebook: @SpecialNeedsCompanies Twitter: @SpecialNeedsCo   Follow and Review: We'd love for you to follow us if you haven't yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We'd love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.  

Workshops that equip educators to support children with disabilities and engage parents are essential in bridging knowledge gaps for better care. In this episode of Parenting Impossible, Annette Hines speaks with Jenny Nechvatal, an Early Childhood Teacher, Author, and devoted parent, who shares her journey raising three children, including twin boys diagnosed with level three autism. Their conversation explores the importance of accepting children's abilities and highlights the diverse support systems available in both Australia and the U.S. Embracing and celebrating a child's unique strengths is a crucial part of parenting children with disabilities. A strong support network ensures they receive the care, resources, and opportunities needed to thrive. Join us to discover how all of these elements work together to ensure empowered children and supported parents.   In this episode, you will hear: How educators can enhance communication with parents of children with disabilities by fostering open, empathetic, and consistent dialogue. Ways play-based learning is essential in early childhood education for children with disabilities, promoting cognitive, social, and motor skill development. Why acceptance at different stages of raising children with disabilities is crucial for fostering confidence, resilience, and a supportive environment. How workshops provide educators and managers with valuable skills and insights to better support children with disabilities. Why strong support systems are essential for individuals with disabilities and their families, ensuring access to resources, advocacy, and community connections. Resources from this Episode: Website: https://innovativedisabilitysolutions.squarespace.com/ Read: Embracing Disability in Early Childhood: Supporting Children Living with a Disability and their Families in Early Childhood Settings LinkedIn: @jenny-nechvatal Instagram & Facebook: @innovativedisabilitysolutions Engage with us: Join our community: Circle of Care Visit:  https://annettehines.com Read Butterflies and Second Chances LinkedIn: @annette-hines-snc  Instagram: @parentingimpossible Facebook: @SpecialNeedsCompanies Twitter: @SpecialNeedsCo   Follow and Review: We'd love for you to follow us if you haven't yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We'd love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.

Parenting can be a whirlwind of chaos and imperfections, but sometimes, it's in those messy moments that growth and learning truly happens. In this episode of Parenting Impossible, Annette Hines speaks with children's author, Cynthia Di Filippo Elomaa. Cynthia embraces imperfection and chaos in parenting, emphasizing that seeking support and tailored assistance is essential while recognizing that each child learns at their own unique pace. Her inclusive educational book series, "Nikki's Very Messy Room," centers on planning, collaboration, and involving children in chores to foster responsibility and ownership, all of which challenges traditional notions of order and perfection by celebrating the natural, messy rhythms of family life.   In this episode, you will hear: Why involving children in planning is important. Why seeking support and asking for help is essential in parenting. What activities can be provided to engage children in learning independently. How interactive reading experiences benefit children. Why it is important to understand that not every child learns at the same pace. Resources from this Episode: Website: https://cynthiadifilippoelomaa.com/ Read: Nicky's Very Messy Room LinkedIn & Twitter/X: @cynthiaelomaa Instagram: @authorcynthiaelomaa YouTube: @AuthorCynthiaDiFilippoElomaa Engage with us: Join our community: Circle of Care Visit:  https://annettehines.com Read Butterflies and Second Chances LinkedIn: @annette-hines-snc  Instagram: @parentingimpossible Facebook: @SpecialNeedsCompanies Twitter: @SpecialNeedsCo   Follow and Review: We'd love for you to follow us if you haven't yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We'd love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.  

Embracing culture is more than just a statement; it's a way of life. In this episode of Parenting Impossible, Annette Hines sat down with Christa Preston, founder of Embrace Kulture, to share her journey of fostering inclusion for children with developmental and cognitive disabilities in Uganda and East Africa. Inspired by her brother, Nick, and local Ugandan child, Olivia, Christa grew the organization into a fully Ugandan-led movement that has reached over a million people, influenced national policies, and transformed inclusive education. She also highlighted #NoMoreHiddenChildren, a growing social movement empowering ambassadors to identify undiagnosed children and spread the message of acceptance. Join the movement and help make a difference by visiting Embrace Kulture's website to learn more and get involved! In this episode, you will hear: The importance of community support for individuals with disabilities, regardless of culture. How Embrace Kulture empowers parents of children with disabilities in Uganda and East Africa What role parents of children with special needs play in the community. How Embrace Kulture collaborates with local experts and organizations in Uganda. Why it is important to respect and reflect the culture and community when working towards inclusive practices. Resources from this Episode: Website: https://www.embracekulture.org/ Facebook, Twitter/X, Instagram : @embracekulture YouTube: ​​@embracekulture6061   Engage with us: Join our community: Circle of Care Visit:  https://annettehines.com Read Butterflies and Second Chances LinkedIn: @annette-hines-snc  Instagram: @parentingimpossible Facebook: @SpecialNeedsCompanies Twitter: @SpecialNeedsCo   Follow and Review: We'd love for you to follow us if you haven't yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We'd love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.  

Being a fiduciary is like being a financial superhero with great power and great responsibility. In this episode of Parenting Impossible, I break down the critical role of fiduciary responsibilities and how to navigate them effectively. Acting as a fiduciary goes beyond managing finances; it requires transparency, organized documentation, and a deep understanding of beneficiaries' needs to make informed decisions. Fiduciaries wield the power to make decisions that significantly impact others' lives. It's a role that demands not only expertise but also a strong sense of duty and ethics. By embracing this checklist, fiduciaries can confidently fulfill their duties and make a lasting positive impact on the lives they touch.   In this episode, you will hear: What key public benefits fiduciaries need to understand and track. What important responsibilities fiduciaries should be aware of. How fiduciaries can ensure effective financial oversight. Why positive relationships and open communication is important in caregiving and fiduciary roles. Engage with us: Join our community: Circle of Care Visit:  https://annettehines.com Read Butterflies and Second Chances LinkedIn: @annette-hines-snc  Instagram: @parentingimpossible Facebook: @SpecialNeedsCompanies Twitter: @SpecialNeedsCo   Follow and Review: We'd love for you to follow us if you haven't yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We'd love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.  

Supporting the special needs community is crucial for creating an inclusive and welcoming world for individuals with disabilities.    In this episode of Parenting Impossible, I talk about the importance of intentional planning to support the special needs community and ease the anxiety that often weighs on individuals with disabilities and their caregivers. I share my experiences and how thoughtful accommodations can make all the difference as a parent. Passion is important, but real change comes from purposeful actions and planning. It's about creating a world where everyone feels included and supported regardless of ability.   In this episode, you will hear: Ways to educate yourself about the challenges and barriers faced by individuals with disabilities. How to support organizations and initiatives that promote inclusivity and accessibility. Learn to speak up against discrimination and promote acceptance and understanding. Discover ways to encourage others to join you in advocating for the rights of individuals with disabilities. Engage with us: Join our community: Circle of Care Visit:  https://annettehines.com Read Butterflies and Second Chances LinkedIn: @annette-hines-snc  Instagram: @parentingimpossible Facebook: @SpecialNeedsCompanies Twitter: @SpecialNeedsCo   Follow and Review: We'd love for you to follow us if you haven't yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We'd love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.  

In the ever-evolving landscape of personal and financial circumstances, regularly updating your estate plan cannot be overstated. In this episode of Parenting Impossible, I talk about why it's so important to keep your estate plan up to date. Life happens—families change, finances shift, and you might buy a new property or start a business in another state. That's why I recommend reviewing your plan every year and doing a deeper dive every three years, or whenever a big life event happens. From my own experience, I've seen how essential it is to adapt your plan so it truly reflects where you are in life. Working with the right attorney can help you address things like creditor issues and make sure your loved ones are taken care of, especially if you're managing unique needs or navigating state-specific rules. Estate planning might not sound exciting, but it's all about protecting the people and things that matter most to you.   In this episode, you will hear: Why it is important to regularly review and update estate plans. Key considerations when preserving assets for disabled beneficiaries. Why it is important to regularly update beneficiary designations. When estate plans should be revised when relocating to another state. Engage with us: Join our community: Circle of Care Visit:  https://annettehines.com Read Butterflies and Second Chances LinkedIn: @annette-hines-snc  Instagram: @parentingimpossible Facebook: @SpecialNeedsCompanies Twitter: @SpecialNeedsCo   Follow and Review: We'd love for you to follow us if you haven't yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We'd love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.  

Individuals with disabilities often encounter significant hurdles in accessing quality healthcare due to limited accessibility options and a scarcity of available services. In this episode of Parenting Impossible, I address the challenges individuals with disabilities face in accessing quality healthcare, including limited services and barriers like Medicaid restrictions. I advocate for policy changes to enhance resources and emphasize the importance of building community to share experiences and solutions. By shifting from a scarcity mindset to one of abundance, focusing on strengths, and setting personalized goals, individuals can better navigate these hurdles. I also highlight the value of education, online resources, and mindfulness in creating a supportive network that fosters growth and advocacy. In this episode, you will hear: Why advocating for policy changes is crucial to increase accessibility and support. How to shift from a scarcity mindset to an abundance mindset when setting goals. The importance of individualized planning for individuals with disabilities. Why building a community is important in supporting individuals with disabilities.   Engage with us: Join our community: Circle of Care Visit:  https://annettehines.com Read Butterflies and Second Chances LinkedIn: @annette-hines-snc  Instagram: @parentingimpossible Facebook: @SpecialNeedsCompanies Twitter: @SpecialNeedsCo   Follow and Review: We'd love for you to follow us if you haven't yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We'd love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.  

The process of planning for the future of disabled children is often overwhelming.    In this episode of Parenting Impossible, I share how planning for the future of disabled children is a daunting yet essential task for their well-being and security. I talk about setting big goals for their future, including where they will live and work, who will support them, and the importance of creating a letter of intent to document their needs, routines, and preferences. I also highlight choosing trusted guardians and trustees who understand disabilities and complex systems like benefits and education. If you need support or resources to start this process, visit my website or reach out. You're not alone—I'm here to help.   In this episode, you will hear: The importance of letters of intent in a child's future. How creating trusts benefits children with special financial needs. Why it is crucial to choose the right individuals for financial decision-making roles. Key elements to consider when planning for disabled children's future. Why clear communication of goals and plans are essential. Engage with us: Join our community: Circle of Care Visit:  https://annettehines.com Read Butterflies and Second Chances LinkedIn: @annette-hines-snc  Instagram: @parentingimpossible Facebook: @SpecialNeedsCompanies Twitter: @SpecialNeedsCo   Follow and Review: We'd love for you to follow us if you haven't yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We'd love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.  

The healthcare system is a battleground where profits often triumph over patient needs. In this episode of Parenting Impossible, I take a closer look at our profit-driven healthcare system after the assassination of UnitedHealthcare CEO Brian Thompson. Financial goals often outweigh patient care, with rising denials for essential treatments and CEO compensation tied to profits—creating a troubling conflict of interest. As a mom who fought tirelessly for my daughter's Medicaid support, I know firsthand how broken this system is for families just trying to get the care they need. It shouldn't be this hard. We can learn from healthcare models in countries like Canada and England, where patients—not profits—come first. It's time for change.   In this episode, you will hear: Some challenges individuals face in navigating complex health insurance policies. How profit-driven healthcare models can impact patient care. Why advocacy is important in ensuring adequate patient care within the healthcare system. Engage with us: Join our community: Circle of Care Visit:  https://annettehines.com Read Butterflies and Second Chances LinkedIn: @annette-hines-snc  Instagram: @parentingimpossible Facebook: @SpecialNeedsCompanies Twitter: @SpecialNeedsCo   Follow and Review: We'd love for you to follow us if you haven't yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We'd love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.  

As the calendar year draws to a close, end-of-year planning becomes essential for individuals seeking to secure their personal and financial futures. In this episode of Parenting Impossible, I dive into the importance of taking control of your finances with a proactive mindset. Instead of getting stuck on setbacks, I encourage you to focus on celebrating your wins and using them as a foundation to move forward. I share practical tips on keeping your asset lists and important documents, like letters of intent, up to date—not just to avoid legal issues but to simplify life for you and your loved ones. We'll also explore how timely retirement and tax planning can set you up for success in the new year, especially in light of the updates from the Secure Act. Let's make this the year you take charge with confidence!  In this episode, you will hear: Why it is important to update documents like letters of intent. What to focus on celebrating at the end of the year. How reviewing retirement assets and estate planning documents benefits you. Why it is crucial to align beneficiary designations with estate planning goals   Engage with us: Join our community: Circle of Care Visit:  https://annettehines.com Read Butterflies and Second Chances LinkedIn: @annette-hines-snc  Instagram: @parentingimpossible Facebook: @SpecialNeedsCompanies Twitter: @SpecialNeedsCo   Follow and Review: We'd love for you to follow us if you haven't yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We'd love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.  

Filmmaking celebrates human connection and inclusiveness, with on-set moments of support and camaraderie often shining through on screen. Hollywood's push to include actors with disabilities is opening doors to fresh stories and perspectives, making the industry more inclusive and inspiring. In this episode of Parenting Impossible, Annette Hines speaks with filmmaker Jay Silverman about his latest film, Camera. Inspired by his journey as a parent to a child with disabilities, the poignant story follows a young mute child in a fishing village. Through its use of the camera as a metaphor for perception and reality, the film explores themes of identity, memory, and perspective, offering a deeply moving and thought-provoking narrative. Silverman discusses the importance of pushing for authentic representation, including casting actors with disabilities. Authentic storytelling can foster connection, understanding, and inclusivity in the world of film and beyond.   In this episode, you will hear: Why authentic storytelling is important in movies like 'Camera'. Why it is important to integrate casts with people with disabilities in Hollywood. How film can play a crucial role in helping people feel understood. Ways to include authentic character representation to resonate with audiences. Resources from this Episode: Website: https://www.jaysilvermanproductions.com/ Watch: CAMERA  LinkedIn: @jay-silverman Facebook: @jay-silverman-productions   Engage with us: Join our community: Circle of Care Visit:  https://annettehines.com Read Butterflies and Second Chances LinkedIn: @annette-hines-snc  Instagram: @parentingimpossible Facebook: @SpecialNeedsCompanies Twitter: @SpecialNeedsCo   Follow and Review: We'd love for you to follow us if you haven't yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We'd love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.  

Grief is an unpredictable force that reshapes life, much like crashing waves.  In this episode of Parenting Impossible, I open up about my journey through grief and coping with the profound loss of my daughter, Elizabeth. There is no "right" way to grieve—it's a deeply personal journey, and being gentle with yourself is important as you work through the pain. During the holidays, grief can feel especially heavy. Finding ways to incorporate your loved one's presence into your celebrations can bring a sense of connection and help you find moments of joy and peace amidst the sorrow. By sharing our stories and supporting one another, we can find comfort and healing in our shared experiences of loss. There are communities and resources ready to support you, especially during the challenging moments of the holiday season. Reach out to me or comment with your favorite resources. Remember, you are not alone in your grief.    In this episode, you will hear: What impact grief has on memory and emotional well-being. How joining a grief group can help in the healing process. The therapeutic power of storytelling and preserving memories in coping with grief. Advice on setting boundaries and self-care during the holiday season. Engage with us: Join our community: Circle of Care Visit:  https://annettehines.com Read Butterflies and Second Chances LinkedIn: @annette-hines-snc  Instagram: @parentingimpossible Facebook: @SpecialNeedsCompanies Twitter: @SpecialNeedsCo   Follow and Review: We'd love for you to follow us if you haven't yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We'd love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.  

Special needs trusts are an essential tool for families who want to ensure the long-term financial security of their loved ones with disabilities. However, I know firsthand how overwhelming and confusing navigating the world of trusts can be. In this episode of Parenting Impossible, I break down the essentials of special needs trusts in an accessible way. I share practical tips for choosing the right trustee and explain their responsibilities. Trustee's are important—not just in managing the trust, but in making sure the beneficiary continues to receive the care and services they need. My goal is to simplify what often feels like a daunting process, stressing that choosing the right trustee, maintaining open communication, and making informed decisions are key to supporting the well-being and future of those we love. In this episode, you will hear: An overview of the responsibilities of a trustee. How special needs trustees differ from regular trustees. What factors should be considered when selecting a trustee. How trust distributions affect public benefits eligibility.   Engage with us: Join our community: Circle of Care Visit:  https://annettehines.com Read Butterflies and Second Chances LinkedIn: @annette-hines-snc  Instagram: @parentingimpossible Facebook: @SpecialNeedsCompanies Twitter: @SpecialNeedsCo   Follow and Review: We'd love for you to follow us if you haven't yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We'd love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.  

Being a caregiver can be tough and sometimes lonely. For caregiving moms, having a sense of community and connection is essential. Whether it's sharing tips on managing hectic schedules or simply lending an empathetic ear, having a supportive network of fellow moms can make all the difference in navigating the challenges of motherhood. In this episode of Parenting Impossible, Annette Hines sits down with Jessica Patay, founder of We Are Brave Together. Inspired by her journey as a special needs mom, Jessica established the nonprofit in 2017 to create a safe, judgment-free space where caregiving moms can connect and support one another, addressing the exhaustion and isolation they often face. In this conversation, Jessica discusses the power of building supportive communities for those navigating the unique challenges of raising children with special needs, as explored in her anthology, Becoming Brave Together. Jessica reminds us that no mother should face their caregiving journey alone. In this episode, you will hear: How caregivers can prioritize their mental health effectively. Why community is essential for supporting caregiving moms. What makes building connections so vital in the world of caregiving. How advocacy for caregivers and raising awareness about their struggles help combat stigma. Resources from this Episode: Website: https://www.wearebravetogether.org/ Listen to the Brave Together Parenting Podcast Read Becoming Brave Together: Heroic, Extraordinary Caregiving Stories from Mothers Hidden in Plain Sight LinkedIn: @jessica-patay Instagram, Facebook, & YouTube: @wearebravetogether Twitter/X: @wearebravemoms Engage with us: Join our community: Circle of Care Visit:  https://annettehines.com Read Butterflies and Second Chances LinkedIn: @annette-hines-snc  Instagram: @parentingimpossible Facebook: @SpecialNeedsCompanies Twitter: @SpecialNeedsCo   Follow and Review: We'd love for you to follow us if you haven't yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We'd love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.  

Parents often carry a heavy weight of shame and self-blame when their children face tough times. It's natural for them to feel responsible, but it's important to remember that not everything is within a parent's control. By staying present and connecting with themselves, parents can let go of the burden of shame and find a more positive, hopeful way forward. In this episode of Parenting Impossible, Annette Hines sits down with Celia Landman, a mindfulness educator and author of When the Whole World Tips: Parenting through Crisis with Mindfulness and Balance. They share an honest and heartfelt conversation about the real struggles of parenting during a crisis and how mindfulness and meditation can truly make a difference. Celia opens up about how parents can reconnect with their true selves and face difficult times without carrying the extra weight of blame or shame. By recognizing societal pressures, allowing themselves to feel a range of emotions, and offering compassionate support to one another, parents can find the grace and resilience they need to keep moving forward. This episode is a reminder that even in the toughest moments, there is hope and community. Parenting through a crisis is never easy, but it's a journey no one has to take alone.    In this episode, you will hear: Explore the key differences between mindfulness and meditation. How mindfulness and meditation can benefit healing and self-awareness. How societal pressures fuel feelings of shame and blame. Why being present in someone's pain is powerful. Resources from this Episode: Website: https://celialandman.com/ LinkedIn: @celia-landman-232185149 Instagram: @celiasacct Facebook: @celia.landman Read: When the Whole World Tips: Parenting through Crisis with Mindfulness and Balance   Engage with us: Join our community: Circle of Care Visit:  https://annettehines.com Read Butterflies and Second Chances LinkedIn: @annette-hines-snc  Instagram: @parentingimpossible Facebook: @SpecialNeedsCompanies Twitter: @SpecialNeedsCo   Follow and Review: We'd love for you to follow us if you haven't yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We'd love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.  

Understanding the administration of special needs trusts can make a world of difference for people with disabilities, providing them with financial stability and peace of mind. These trusts—like third-party and first-party trusts—come with specific rules that trustees must follow to ensure the beneficiary can keep accessing essential public benefits. In this episode of Parenting Impossible, I talk about the importance of building a solid relationship between trustees and beneficiaries. Understanding the basics of trust administration is valuable for everyone—not just those currently acting as trustees. I also stress how crucial it is to use clear, precise language and to accurately identify beneficiaries in trust documents. These details are essential to ensuring that beneficiaries keep access to the public resources they rely on. If you're ready to take control of your trust administration knowledge and make a lasting impact, register for my Special Needs Advocacy and Planning Masterclass. This provides the tools and guidance you need to create a comprehensive life plan with confidence. In this episode, you will hear: Learn the difference between third-party and first-party special needs trusts. What factors trustees should consider when making distribution decisions within special needs trusts. What responsibilities trustees have when managing special needs trusts. How trustees can protect the beneficiary's public benefits within special needs trusts. Why it is essential for trustees to consult with professionals and understand tax implications. Resources from this Episode: Register for the Special Needs Advocacy and Planning Masterclass   Engage with us: Join our community: Circle of Care Visit:  https://annettehines.com Read Butterflies and Second Chances LinkedIn: @annette-hines-snc  Instagram: @parentingimpossible Facebook: @SpecialNeedsCompanies Twitter: @SpecialNeedsCo   Follow and Review: We'd love for you to follow us if you haven't yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We'd love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.  

For longtime listeners, it's clear this podcast covers a wide range of topics—from family discussions about kids to conversations on adult disabilities. This conversation focuses on the challenges of balancing health and work while living with a chronic illness. Practices like meditation, journaling, and cognitive behavioral therapy (CBT) are powerful tools for managing mental health, offering ways to create a more stable and fulfilling life despite these ongoing challenges. In this episode of Parenting Impossible, Annette Hines talks with Lauren Perna, leader of the Boston chapter of the Chronic Boss Collective, dedicated to supporting businesswomen and entrepreneurs managing chronic conditions. With a corporate background and personal experience with mental health struggles, Lauren understands the challenges of balancing ambition and well-being. She's built a community where entrepreneurship and mental health go hand in hand, promoting self-awareness and the importance of self-care. Lauren also advocates for workplace cultures that prioritize both mental and physical health.   In this episode, you will hear: What tools to use for managing mental health Why it is important to create custom work arrangements Why re-evaluating workplace cultures is important How to balance being an ambitious entrepreneur while dealing with chronic conditions Resources from this Episode: Website: https://www.laurenperna.com/ LinkedIn: @laurenelizabethperna Instagram & Facebook: @laurenpernacomms   Engage with us: Join our community: Circle of Care Visit:  https://annettehines.com Read Butterflies and Second Chances LinkedIn: @annette-hines-snc  Instagram: @parentingimpossible Facebook: @SpecialNeedsCompanies Twitter: @SpecialNeedsCo   Follow and Review: We'd love for you to follow us if you haven't yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We'd love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.  

Parenting is a rewarding journey filled with love, laughter, and joy. However, it also comes with its fair share of challenges. From sleepless nights to tantrums in the grocery store, every parent faces obstacles along the way. But what happens when those challenges are compounded by raising a child with disabilities? In this episode of Parenting Impossible, Annette Hines speaks with Joanne De Simone, a special education advocate, and author of “Fall and Recovery: Raising Children with Disabilities through Lessons Learned in Dance”, about the challenges of raising a child with disabilities and navigating the healthcare and education systems. Joanne, a former professional dancer turned advocate, shares her journey and the importance of building community support for parents facing similar struggles. She also discusses her role in securing a legislative change that allowed her son, Sebastian, to participate in NCAA D3 intercollegiate sports, a huge win in her commitment to inclusivity. True change for children with disabilities comes through relentless advocacy, collective support, and the belief that every challenge can be met with hope and resilience.   In this episode, you will hear: Common challenges parents face when raising a child with disabilities How parents can advocate for inclusive environments in the education system Why community support is important for parents of children with disabilities How can embracing hope and possibility lead to personal growth Resources from this Episode: Website: https://special-educationmom.com/  Read: “Fall and Recovery: Raising Children with Disabilities through Lessons Learned in Dance” Facebook: @special-educationmom Twitter/X, Instagram: @jojdesimone LinkedIn: @joanne-de-simone   Engage with us: Join our community: Circle of Care Visit:  https://annettehines.com Read Butterflies and Second Chances LinkedIn: @annette-hines-snc  Instagram: @parentingimpossible Facebook: @SpecialNeedsCompanies Twitter: @SpecialNeedsCo   Follow and Review: We'd love for you to follow us if you haven't yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We'd love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.  

Parenting a child with hearing loss comes with its own unique challenges and families may find themselves grappling with isolation and communication barriers. In these moments, community support and shared knowledge can make a world of difference. In this episode of Parenting Impossible, Annette Hines welcomes Alaine Jacobs, a passionate advocate for the deaf community. Drawing from her personal experience as a parent, Alaine guides and supports others facing similar challenges. With a background in education, she helps families navigate both medical and educational systems, offering practical advice through her website, RaisingDeafKids.com, and her “Raising Deaf Kids” podcast. During the conversation, she addresses the ongoing debate within the deaf community about hearing loss, emphasizing that many view it not as a disability but as a normal variation of human experience. Alaine encourages respect for diverse opinions and choices, urging parents to connect with local and online communities to empower themselves in making informed decisions that best suit their family's needs.   In this episode, you will hear: Learn about key resources for parents of children with hearing loss. Discover the divisions in the hearing loss community regarding cochlear implants The importance of early diagnosis and intervention for hearing loss. How to create a personalized communication plan for children with hearing loss. Why parents of children with hearing loss need to connect with local and online communities for support and information. Resources from this Episode: Website: http://raisingdeafkids.com/ Listen to the Raising Deaf Kids Podcast Facebook: @raisingdeafkids   Engage with us: Join our community: Circle of Care Visit:  https://annettehines.com Read Butterflies and Second Chances LinkedIn: @annette-hines-snc  Instagram: @parentingimpossible Facebook: @SpecialNeedsCompanies Twitter: @SpecialNeedsCo   Follow and Review: We'd love for you to follow us if you haven't yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We'd love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.  

The journey of caring for a child with disabilities is a tumultuous emotional ride. There are highs celebrating achievements and lows during setbacks. It's important to recognize those feelings and find healthy ways to cope along the way. In this episode of Parenting Impossible, Annette Hines chats with Jessica Fein, author of Breath Taking: A Memoir of Family, Dreams, and Broken Genes and host of the I Don't Know How You Do It podcast. Jessica opens up about her journey parenting a child with MERRF syndrome, an ultra-rare degenerative disease, and emphasizes the importance of visibility for acceptance and inclusion. Instead of focusing solely on challenges, she stresses the need to highlight the unique strengths of children with disabilities, which fosters a more inclusive society. Annette and Jessica also discuss how vital it is to have a supportive community, as raising a child with disabilities truly takes a village.   In this episode, you will hear: How writing can help parents cope with emotional challenges. Ways to find beauty and joy amidst grief and sorrow. Why advocating for awareness and inclusion is important for children with disabilities. How a strong support system can benefit parents of children with disabilities. Resources from this Episode: Website: https://www.jessicafeinstories.com/  Read Breath Taking: A Memoir of Family, Dreams, and Broken Genes Listen to I Don't Know How You Do It Facebook:@jessica.fein.92  Instagram:  @feinjessica  LinkedIn:@jessica-fein   Engage with us: Join our community: Circle of Care Visit:  https://annettehines.com Read Butterflies and Second Chances LinkedIn: @annette-hines-snc  Instagram: @parentingimpossible Facebook: @SpecialNeedsCompanies Twitter: @SpecialNeedsCo   Follow and Review: We'd love for you to follow us if you haven't yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We'd love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.  

Music has a way of connecting people, transcending language barriers, and healing the soul. The discipline and dedication required to master an instrument can translate into valuable life skills that go beyond the music classroom.  In this episode of Parenting Impossible, Annette Hines spoke with Annie Ray, the founder of the Crescendo Orchestra program, a music class tailored for students with significant disabilities, and Parent Orchestra, which invites parents to join their children in learning music, fostering a vibrant community, and encouraging parental involvement in their kids' musical journeys. Annie passionately advocates for music education as a core subject, emphasizing the need to meet students where they are and tailor instruction to their unique needs. Her approach showcases music's profound impact on students, transcending mere notes and rhythms. The Crescendo Orchestra program is a shining example of how music can transform the lives of young students, providing them with a sense of community, purpose, and hope for the future.   In this episode, you will hear: Why emphasizing a student-centered approach fosters a joyful space for musical exploration without fear of judgment. Ways the Parent Orchestra program has built a vibrant community of over 200 parents on a shared learning journey. How music education sharpens cognitive abilities and instills resilience, helping students navigate challenges and embrace imperfections. Ways fellow educators can launch inclusive music programs, advocating for equal access to the transformative power of music education. Resources from this Episode: Watch Annie's TEDx Talk: https://www.ted.com/talks/annie_ray_the_sound_of_sucess Learn More About Annie's Program and GRAMMY win - Annie Ray: Music Educator Learn More about the Parent Orchestra -

Disability is a topic often surrounded by stigma and misconceptions, particularly within Kenyan communities, where the burden can become a significant financial strain on families. In Kenya, parents of children with disabilities face not only a lack of acceptance and support but also the heavy weight of stigma, which exacerbates their struggles.    In this episode of Parenting Impossible, Annette Hines and Thitu Muiruri, an accomplished filmmaker, sheds light on the pervasive stigma surrounding disabilities in African communities. Muiruri's documentary work delves into the struggles faced by parents of children with disabilities, revealing the harsh realities of societal judgment, lack of support, and financial hardships. Through her documentaries and short films, she seeks to spark critical discussions and educate the public about the challenges individuals with disabilities face. It's through these conversations that people can truly understand different perspectives, learn from one another, and work towards positive change.   In this episode, you will hear: What challenges parents of children with disabilities in Kenya face. How societal attitudes add to the struggles of individuals with disabilities and their families. What role informal support networks among mothers play in the disabilities community. What efforts are needed to provide resources and support to mothers of children with disabilities. How to advocate for better accessibility in buildings and roads for individuals with disabilities and their families. Resources from this Episode:   Website: https://thitu.art Facebook: @thituproductions  Instagram:@thitu___  LinkedIn: @salthitumuiruri Engage with us: Join our community: Circle of Care Visit:  https://annettehines.com Read Butterflies and Second Chances LinkedIn: @annette-hines-snc  Instagram: @parentingimpossible Facebook: @SpecialNeedsCompanies Twitter: @SpecialNeedsCo   Follow and Review: We'd love for you to follow us if you haven't yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We'd love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.  

Parenting is a tough job and when you have a child with special needs, the challenges can be even more complex. From advocating for your child in school to finding the right therapy options, there are so many aspects of parenting a child with special needs that require extra care and attention. Amidst these pressures, marriages can face significant strain.   In this episode of Parenting Impossible, Annette Hines, Todd Evans PhD, MA, and Kristin Evans MA, MS, LMSW explore the challenges of raising a child with special needs. Todd and Kristin, authors of “How to Build a Thriving Marriage as You Care for Children with Disabilities,” share insights on balancing their dreams, their child's needs, and their marriage. They highlight the importance of parents prioritizing mental health and self-care to better support their children. Clear communication, emotional connection, and time management remain essential for effective care. Parents of children with special needs are encouraged to take time for themselves—self-care is crucial for caring for others.   In this episode, you will hear: Why effective communication is important for parents of children with special needs How parents of children with special needs can prioritize their own well-being Healthy ways to recognize the address challenges in caregiving marriages Why it is crucial to have a supportive partner during challenging times How parents can effectively advocate for their child with special needs in school and medical settings Resources from this Episode: Website: https://disabilityparenting.com/ Read: How to Build a Thriving Marriage as You Care for Children with Disabilities Facebook: Kristin.Evans.5895 Twitter: @AuthorKristinEv Instagram: @disabilityparenting  LinkedIn: @Kristin-Evans Engage with us: Join our community: Circle of Care Visit:  https://annettehines.com Read Butterflies and Second Chances LinkedIn: @annette-hines-snc  Instagram: @parentingimpossible Facebook: @SpecialNeedsCompanies Twitter: @SpecialNeedsCo   Follow and Review: We'd love for you to follow us if you haven't yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We'd love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.  

Transition planning from school to adult life is a crucial aspect of ensuring individuals with additional needs have the support and resources they need to lead fulfilling lives. With the introduction of the new transition planning IEP form, understanding its purpose and how it benefits those in the transition process is essential.   In this episode of Parenting Impossible, Annette Hines and Graham Caldow dive deep into transition planning for young people with disabilities as they prepare for adulthood. Graham, drawing from his personal experiences and his book “What's Possible? Plan A Better Future for Your Young Adult with Additional Needs,” discusses the importance of a structured yet personalized approach to goal-setting. He emphasizes the importance of involving young people in their own planning, using his “Red Giraffe” tool as both a symbol and a practical example of how transition planning can be tailored to fit each individual's unique needs. Transition planning focuses on setting goals and creating a roadmap to help individuals transition smoothly from school to post-school life, ensuring they have the skills and support needed to find purpose and achieve their goals.   In this episode, you will hear: How the Red Giraffe planning tool can help individuals with disabilities Why regularly assessing and adjusting transition plans matters Finding top programs for smoothly transitioning students into employment Strategies to make sure schools follow through on transition planning Why finding purpose in daily life is crucial for individuals with disabilities Resources from this Episode: Website: www.redgiraffesolutions.com  Read What's Possible? Plan A Better Future for Your Young Adult with Additional Needs Listen to The Expanding Worlds Podcast Facebook: @redgiraffesolutions Instagram & LinkedIn: @grahamcaldow Pinterest: @Red_Giraffe_Solutions   Engage with us: Join our community: Circle of Care Visit:  https://annettehines.com Read Butterflies and Second Chances LinkedIn: @annette-hines-snc  Instagram: @parentingimpossible Facebook: @SpecialNeedsCompanies Twitter: @SpecialNeedsCo   Follow and Review: We'd love for you to follow us if you haven't yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We'd love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.  

Being a caregiver is a demanding role that requires immense strength, patience, and compassion. Caregivers often face challenges that can be physically, emotionally, and mentally draining. However, being resilient is crucial for caregivers to navigate the ups and downs of their caregiving journey. In this episode, Annette Hines and Michelle Mercier have an in-depth conversation about what it really means to be resilient as a caregiver. Michelle, a business growth consultant, brings a unique perspective to the table, sharing her thoughts on the tough challenges caregivers face every day. She compares resilience to building a muscle, something that takes consistent effort and practice. As a caregiver, resilience is a powerful tool that can help navigate the challenges and uncertainties of caring for a loved one. By prioritizing self-care, seeking support, and practicing resilience, caregivers can better cope with the demands of their role and continue to provide the best care for their loved ones.    In this episode, you will hear: The importance of resilience for caregivers How to prioritize time freedom over money freedom Why work-life integration is essential for personal well-being How to model self-care habits to benefit children's well-being What challenges are faced by caregivers of children with medical conditions Resources from this Episode:   Website: https://www.MichelleAMercier Facebook: @MichelleAMercier.1 Instagram: @michelle_a_mercier LinkedIn: @michelle-a-mercier   Engage with us: Join our community: Circle of Care Visit:  https://annettehines.com Read Butterflies and Second Chances LinkedIn: @annette-hines-snc  Instagram: @parentingimpossible Facebook: @SpecialNeedsCompanies Twitter: @SpecialNeedsCo   Follow and Review: We'd love for you to follow us if you haven't yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We'd love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.  

Navigating the world of IEPs (Individualized Education Programs)  and 504 Plans can be overwhelming for parents and educators alike. Both IEPs and 504 plans provide essential educational support but differ in their goals, services, eligibility, and duration. IEPs offer specialized instruction with specific objectives and progress monitoring from pre-K through high school, while 504 plans ensure access and equity and can extend through college.   In this episode, Annette Hines and April Rehrig, the founder of Rise Educational Advocacy and Consulting, discuss the strengths and weaknesses of IEPs and 504 plans. April emphasizes the importance of positive language in IEP meetings, advocating for strength-based approaches, and involving students and parents in the planning process. By focusing on strengths, setting high expectations, and fostering a collaborative environment, parents and educators can help students reach their full potential. Join us for an episode that will change how you approach IEPs and 504 Plans. Learn how to advocate for your child using strength-based approaches and collaborative planning.   In this episode, you will hear: The difference between an IEP and a 504 plan How positive language benefits students in IEP meetings Tips for transitioning students from IEPs to college Why it is important to focus on a child's strengths in an IEP How involving students in the IEP planning process empowers them Resources from this Episode:   Website: https://www.riseeducationaladvocacy.com/ Facebook, Instagram, & Pinterest: @riseedadvocacy  LinkedIn: @aprilrehrigspecialeducationadvocate   Engage with us: Join our community: Circle of Care Visit:  https://annettehines.com Read Butterflies and Second Chances LinkedIn: @annette-hines-snc  Instagram: @parentingimpossible Facebook: @SpecialNeedsCompanies Twitter: @SpecialNeedsCo   Follow and Review: We'd love for you to follow us if you haven't yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We'd love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.  

Are you ready for the new school year?  Back-to-school season can be both exciting and overwhelming for parents, especially those with children who have special needs or medical requirements. From my experience, preparing for a new school year when your child has special needs involves carefully reviewing their IEPs and healthcare plans. It's really important to go over these and make sure everything's up to date, and share any progress from summer activities. I've learned that building a good relationship with school staff and service providers makes a huge difference. It helps to start those conversations early, have open communication, and be your child's biggest advocate. While the process can seem daunting, it's important to remember that supportive teams do exist. Finding these "gems" is key to creating a positive and enriching educational experience for your child. In this episode, you will hear: The importance of reviewing IEP/ISPs, healthcare plans, and progress notes to prepare children with special needs for the new school year. How parents can build supportive, collaborative relationships with school staff and service providers. Why understanding healthcare protocols and emergency procedures for the safety of children with medical needs at school is crucial. How parents can identify positive, supportive teams in educational and adult support programs.   Engage with us: Join our community: Circle of Care Visit: Annette Hines Read Butterflies and Second Chances LinkedIn: @annette-hines-snc  Instagram: @parentingimpossible Facebook: @SpecialNeedsCompanies Twitter: @SpecialNeedsCo   Follow and Review: We'd love for you to follow us if you haven't yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We'd love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.

Parents naturally want to make sure their child with disabilities is well taken care of, both now and in the future. It's not just about meeting the day-to-day needs but also thinking ahead to their long-term financial security. There's a lot to juggle—from managing medical expenses to planning for their financial future. It can feel pretty overwhelming and complicated. In this episode, host Annette Hines welcomes financial planning expert, James Lange, to discuss the crucial need for specialized financial planning for parents of children with disabilities. James emphasizes the importance of working with advisors who understand the unique financial needs of these families and securing government benefits like SSI or SSDI to ensure long-term support. The conversation covers essential legal documents such as wills and trusts, and James offers a free copy of his book, “Retire Secure for Parents of a Child with a Disability,” packed with strategies for financial planning. Annette and James delve into the practical and emotional aspects of financial security, reflecting on how proactive planning can provide peace of mind and a brighter future for children with disabilities.   In this episode, you will hear: The importance of collaborating with specialized financial planners and tax advisors for families with children with disabilities Key government benefits essential for the financial support of children with disabilities The necessity of creating appropriate wills, trusts, and powers of attorney tailored for children with disabilities How proper financial planning can alleviate anxiety for parents raising children with disabilities Why it is important to involve the child in the financial planning process Resources from this Episode: Free digital copy of Retire Secure for Parents of a Child with a Disability Website: https://DisabledChildPlanning.com Facebook:  @RothRevolution Twitter/X: @rothguy  LinkedIn:@jameslangecpa Other Sites:https://PayTaxesLater.com Engage with us: Join our community: Circle of Care Visit:  https://annettehines.com Read Butterflies and Second Chances LinkedIn: @annette-hines-snc  Instagram: @parentingimpossible Facebook: @SpecialNeedsCompanies Twitter: @SpecialNeedsCo   Follow and Review: We'd love for you to follow us if you haven't yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We'd love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.

The journey of caregiving is a delicate dance of emotions and responsibilities, especially for parents of disabled children who face societal pressures. Home and community care services provide essential support and respite, allowing families to maintain a safe environment and caregivers to recharge. Self-care, such as meditation or exercise, is critical for caregivers to sustain their well-being and continue their responsibilities.   In this episode, host Annette Hines sits with Kelley Coleman as she shares her journey of parenting a disabled child, revealing how it led her to write "No One Tells You About Parenting a Disabled Child: Your Guide to the Essential Systems, Services, and Supports." Kelley expresses the importance of accessing accurate information and insights directly from individuals with disabilities to combat stigma and misconceptions. Her book serves as a practical guide for caregivers, filled with invaluable checklists, personal stories, and strategies for self-care, effective communication, and advocacy. Kelley and Annette bond over their shared love for practical tools, discussing the significance of job training in caregiving and urging caregivers to establish boundaries and prioritize their well-being. They reflect on their own experiences, the emotional toll of caregiving, and the power of a supportive community.   In this episode, you will hear: Why it is important to seek insights from individuals with disabilities Addressing the challenges faced by parents of disabled children How caregivers can prioritize self-care and establish boundaries Why it is important to advocate for home and community-based care services What resources are available for caregivers of children with disabilities Resources from this Episode: Kelley Coleman: www.kelleycoleman.com  Facebook:  @kelley.coleman.56 Instagram: @hellokelleycoleman    Engage with us: Join our community: Circle of Care Visit:  https://annettehines.com Read Butterflies and Second Chances LinkedIn: @annette-hines-snc  Instagram: @parentingimpossible Facebook: @SpecialNeedsCompanies Twitter: @SpecialNeedsCo   Follow and Review: We'd love for you to follow us if you haven't yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We'd love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.  

Have you ever wondered how Social Security impacts those who are disabled or retired? I've seen firsthand how crucial it is for providing financial stability.  Earlier this month we spoke about Social Security and Work. In this episode of Parenting Impossible, I want to delve deeper into the basics of the critical topic of social security, public benefits, and financial planning for individuals with disabilities. Did you know that ABLE accounts are revolutionary, allowing you to save money without jeopardizing benefits like Medicaid and Supplemental Security Income (SSI)? Proper financial planning is crucial, as one misstep in managing assets can lead to the loss of these vital benefits. For SSI recipients and those on Social Security Disability Insurance (SSDI), understanding the nuances of your programs can make a big difference. Navigating social security benefits and work income can be challenging, but with the right knowledge and understanding, you can make informed decisions that benefit your financial stability.  In this episode, you will hear: Learn about Supplemental Security Income (SSI) and Social Security Disability Insurance (SSDI) How work income affects SSI benefits How ABLE accounts can help manage assets without affecting SSI or Medicaid eligibility Why planning for Medicaid coverage is important   Engage with us: Join our community: Circle of Care Visit: Annette Hines Read Butterflies and Second Chances LinkedIn: @annette-hines-snc  Instagram: @parentingimpossible Facebook: @SpecialNeedsCompanies Twitter: @SpecialNeedsCo   Follow and Review: We'd love for you to follow us if you haven't yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We'd love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.  

Imagine navigating a system where your needs are ignored due to your age. This is the reality for many adults with autism facing age discrimination. The fight against this injustice hinges on advocacy, personalization, and accessibility. Advocating for legislative changes ensures equality and fairness. In this episode, host Annette Hines talks with Christina Gravina CEO & Founder of BILT (Bridging Independent Living Together, Inc.). Annette and Christina address age discrimination in autism services, highlighting the challenges adults face when denied support due to age. Christina advocates for legal changes and emphasizes personalized, goal-oriented services over the one-size-fits-all model. Her organization, BILT, offers one-on-one support, therapeutic mentoring, skill-building, and community integration, with options for private pay and insurance. They've also opened a center with small group classes and a high staff-to-client ratio, allowing clients to choose activities they enjoy. Christina stresses starting small, gathering feedback, and overcoming funding challenges to create effective programs for people with disabilities.   In this episode, you will hear: Why you should advocate for legislative changes to address age discrimination in autism services. How to provide individualized services tailored to the unique goals and interests of disabled individuals. What payment options, such as private pay, school district funding, DDS payments, and insurance, can make services more accessible. Ways to create meaningful programs for individuals with disabilities. Resources from this Episode: Website: www.biltne.org Facebook, Instagram, & LinkedIn: biltinc   Engage with us: Join our community: Circle of Care Visit:  https://annettehines.com Read Butterflies and Second Chances LinkedIn: @annette-hines-snc  Instagram: @parentingimpossible Facebook: @SpecialNeedsCompanies Twitter: @SpecialNeedsCo   Follow and Review: We'd love for you to follow us if you haven't yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We'd love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.  

Talking about the challenges of disability can be tough and delicate. For those living with disabilities and their caregivers, every day brings unique hurdles that demand patience, creativity, and resilience. It's crucial to focus on person-centered planning and get creative to make sure disabled individuals have the support they need to thrive. In this episode, I get into the real challenges of disability and how crucial informed decision-making and proactive planning are for parents and caregivers. From my own experiences, I think it's important to recognize our mistakes, stay resilient, and come up with creative solutions ourselves. I also share why having a solid disability or life plan matters, covering things like agency meetings, housing, financial support, and transitioning to adulthood. Effective communication, adaptability, and a supportive community are key to advocating for your loved ones. Let's keep supporting each other, staying resilient, and making informed decisions to ensure a brighter future for our kids and those we care for.   In this episode, you will hear: Why it is important to create a disability or life plan for loved ones with disabilities. How being creative can help navigate challenges for parents and caregivers of disabled individuals. Why it is crucial to recognize mistakes and adjust plans when supporting individuals with disabilities. What role effective communication plays in advocating for individuals with disabilities. Why it is important to prioritize person-centered planning for individuals with disabilities. Engage with us: Join our community: Circle of Care Visit:  https://annettehines.com Read Butterflies and Second Chances LinkedIn: @annette-hines-snc  Instagram: @parentingimpossible Facebook: @SpecialNeedsCompanies Twitter: @SpecialNeedsCo   Follow and Review: We'd love for you to follow us if you haven't yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We'd love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.  

Sexuality education is a crucial aspect of personal development, but it often overlooks those with disabilities. These individuals deserve access to information that empowers them to make informed decisions about their bodies and relationships. Empowerment through education can be a shield against abuse and exploitation.   In this episode, Annette Hines dives into a crucial conversation with Katherine McLaughlin, CEO and Lead Trainer at Elevatus Training. They tackle the challenging yet essential topic of discussing sexuality, especially for parents of children with disabilities. Katherine introduces her comprehensive 22-lesson curriculum designed to support these vital conversations, emphasizing the importance of teaching bodily autonomy, consent, and decision-making to prevent abuse and promote healthy relationships. Annette and Katherine explore how inclusive training programs must evolve to reflect the fluidity of modern sexuality, embracing diverse perspectives on gender and sexual orientation. Join us for this engaging and eye-opening discussion that aims to foster a more inclusive and supportive society.   In this episode, you will hear: Why it is important to teach individuals with disabilities about bodily autonomy and consent How empowering individuals with disabilities in decision-making processes helps them navigate risk What topics parents should focus on when discussing challenging issues like sexuality with their children Why it is crucial for training programs to address the diversity of gender identities and sexual orientations How integrating sexuality education into communities can lead to healthier relationships and overall well-being Resources from this Episode: Website: https://www.elevatustraining.com/ LinkedIn: @katherine-mclaughlin Facebook: https://www.facebook.com/elevatustraining     Engage with us: Join our community: Circle of Care Visit:  https://annettehines.com Read Butterflies and Second Chances LinkedIn: @annette-hines-snc  Instagram: @parentingimpossible Facebook: @SpecialNeedsCompanies Twitter: @SpecialNeedsCo   Follow and Review: We'd love for you to follow us if you haven't yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We'd love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.  

How do you navigate the stormy waters of divorce when adult children with disabilities are involved? It's a tough situation that needs careful planning and thought to make sure everyone in the family is okay.   In this episode, Annette Hines provides insights into the challenges faced by divorcing parents of adult children with disabilities, emphasizing the need for clear communication and effective guardianship. She advises keeping the adult child out of the divorce process and separating their welfare discussions from other divorce issues. Hines also highlights the importance of estate planning, recommending neutral third-party trustees, and including life insurance policies in divorce agreements for ongoing financial support. Additionally, she explains the legal steps needed to direct child support payments into a trust, protecting public benefits like SSI and Medicaid.   In this episode, you will hear: Why effective communication is crucial in co-guardianships How life insurance policies can be utilized in divorce agreements to support dependents The benefits of involving a neutral third party in managing special needs trust Why adult children with disabilities should be kept out of the divorce process How child support payments can be directed into a trust to protect public benefits like SSI and Medicaid Engage with us: Join our community: Circle of Care Visit:  https://annettehines.com Read Butterflies and Second Chances LinkedIn: @annette-hines-snc  Instagram: @parentingimpossible Facebook: @SpecialNeedsCompanies Twitter: @SpecialNeedsCo   Follow and Review: We'd love for you to follow us if you haven't yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We'd love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.

Preserving family history is like capturing a piece of time in a bottle. It allows us to pass down memories, stories, and experiences to future generations. Whether it's old photographs, letters, or even recipes, archiving family history is a meaningful way to honor our past and ensure that it lives on for years to come.   In this episode, host Annette Hines talks with Angela Todd, a family history buff who's passionate about preserving memories, inspired by her journey with her daughters, Elizabeth and Caroline, who faced some tough times in the NICU. She's all about capturing those family moments but is not a fan of modern scrapbooking because it doesn't last. Instead, Angela suggests going digital with photos and carefully organizing the originals so that family stories stay intact and easy to access. Through her teaching program, she helps women document their kids' lives, making sure to include everyday moments and the stories of people often left out, like those with special needs, to build complete and inclusive family archives.   In this episode, you will hear: The role of archivists in preserving historical documents. Why it is important to include diverse voices and materials in archives. The challenges of traditional scrapbooking and how digitization helps in preserving family legacies Why it is essential to document the stories and experiences of individuals with special needs. Where family archives can be donated for preservation. Resources from this Episode: Angela Todd: https://angelaltodd.com/ Contact: a.todd17@yahoo.com LinkedIn: @angelaleightodd   Engage with us: Join our community: Circle of Care Visit:  https://annettehines.com Read Butterflies and Second Chances LinkedIn: @annette-hines-snc  Instagram: @parentingimpossible Facebook: @SpecialNeedsCompanies Twitter: @SpecialNeedsCo   Follow and Review: We'd love for you to follow us if you haven't yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We'd love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.  

Are you missing out on your social security benefits? Social Security updates may not be the most riveting topic, but they're a lifeline for those who depend on these benefits. Whether you're already receiving Social Security or planning for the future, keeping up with the latest changes can make navigating the system a whole lot smoother.   In this episode, host Annette Hines delves into the intricacies of the recent updates to Social Security benefits, specifically focusing on In-Kind Support and Maintenance (ISM) and overpayments. She expresses concerns about the impact of ISM on Social Security recipients, particularly those on SSI. Annette argues that including shelter costs in ISM calculations perpetuates poverty among recipients, making it especially difficult for them to secure housing in high-cost areas. She also underscores the importance of addressing the shelter component of ISM to reduce financial strain, and she highlights the need to streamline the overpayment recovery process to mitigate the burden on beneficiaries.   In this episode, you will hear: How to understand the asset limits for Social Security benefits to ensure eligibility and compliance with regulations Why it is important to learn about Substantial Gainful Activity (SGA) and its implications for individuals with disabilities receiving benefits. How to utilize Impairment-Related Work Expenses (IRWE) to reduce income for the trial work period and maintain benefits What to consider about subsidization from employers to prevent disabled workers from exceeding substantial gainful activity levels. How to stay informed about recent changes to Social Security benefits and overpayment recovery rates to manage repayment demands. Engage with us: Join our community: Circle of Care Visit:  https://annettehines.com Read Butterflies and Second Chances LinkedIn: @annette-hines-snc  Instagram: @parentingimpossible Facebook: @SpecialNeedsCompanies Twitter: @SpecialNeedsCo   Follow and Review: We'd love for you to follow us if you haven't yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We'd love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.  

Have you ever wondered how to ensure financial security for a disabled loved one after you're gone? Or perhaps you're looking for ways to navigate the complexities of estate planning when it comes to disability benefits. In either case, understanding the ins and outs of Qualified Disability Trusts (QDTs) is a game-changer.   In this episode, host Annette Hines talks with Mark Worthington, Senior Counsel at Special Needs Law Group of Massachusetts, P.C.. Annette and Mark discussed the intricacies of qualified disability trusts and the significant impact of the Secure Act and Secure 2.0 regulations on retirement and estate planning. These regulations have introduced essential adjustments, particularly affecting minimum distribution requirements and allowing charities to be designated as beneficiaries, providing greater flexibility in special needs trusts (SNTs). This is invaluable information that will make all the difference for you and your loved one's futures.    In this episode, you will hear: How the Secure Act and Secure 2.0 Regulations impact minimum distribution requirements and charity beneficiaries Why you should be thoughtful about your trustees What the tax implications of third-party special needs trusts are based on income earned and distributions made How a trust can inherit an IRA What you need to know about ABLE Accounts and why you should have one Resources from this Episode: Mark W. Worthington: https://specialneeds-law.com/about-us/mark-w-worthington/   Engage with us: Join our community: Circle of Care Visit:  https://annettehines.com Read Butterflies and Second Chances LinkedIn: @annette-hines-snc  Instagram: @parentingimpossible Facebook: @SpecialNeedsCompanies Twitter: @SpecialNeedsCo   Follow and Review: We'd love for you to follow us if you haven't yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We'd love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.

Having been a caregiver for a disabled loved one, I know firsthand how lonely it can feel. However, our communities are key to dispeling isolation and forging connections during these hard times. In this episode of Parenting Impossible, I share my motto 'create the things you wish existed,' and delve into how building a support network has been my lifeline. Getting involved in local organizations, support groups, and advocacy efforts has helped me find valuable resources and work toward a more inclusive society. For caregivers, having a support system is crucial to prevent burnout, provide emotional support, and offer practical assistance. Connecting with other caregivers for advice and accessing respite care services has been vital for my well-being. Knowing I have a community to lean on has been a game-changer. In this episode, you will hear: Why I believe building supportive networks is crucial for caregivers of disabled individuals How I've seen engaging in parent support groups benefit families with disabled members The impact I've noticed community engagement has on individuals and families navigating disability   Engage with us: Join our community: Circle of Care Visit: Annette Hines Read Butterflies and Second Chances LinkedIn: @annette-hines-snc  Instagram: @parentingimpossible Facebook: @SpecialNeedsCompanies Twitter: @SpecialNeedsCo   Follow and Review: We'd love for you to follow us if you haven't yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We'd love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.  

While living in a society that can sometimes seem overwhelmingly critical and exclusive, creating an atmosphere of inclusivity and acceptance is vital, especially for individuals with disabilities. For a parent to a child with special needs, balancing feelings of guilt, the challenges of self-care, and the importance of fostering acceptance can be difficult.    In this episode, host Annette Hines talks with Debi Arsenault about her experiences raising her son Carson, who has a clinical diagnosis of Angelman Syndrome. Debi opens up about the hurdles she's faced with state services, the advocacy work she's done for Carson, and how it's all impacted her family. She talks passionately about the need for inclusivity, understanding non-verbal communication, and the importance of educating others about disabilities. Debi's children's book, "The Magic of the Man with the Sunglasses," is a heartfelt story promoting kindness and acceptance, reminding us that everyone has their own unique "magic" to share with the world.   In this episode, you will hear: Ways to advocate for those with disabilities to get a proper diagnosis and find the right care and services What it means to recognize the unique value and "magic" in everyone How understanding and interpreting non-verbal communication is significant Learn the crucial role of support systems for parents and caregivers of children with disabilities Discover the emotional realities of parenting a child with disabilities Resources from this Episode: LinkedIn:  Deborah Arsenault Book: The Magic of the Man with the Sunglasses   Engage with us: Join our community: Circle of Care Visit:  https://annettehines.com Read Butterflies and Second Chances LinkedIn: @annette-hines-snc  Instagram: @parentingimpossible Facebook: @SpecialNeedsCompanies Twitter: @SpecialNeedsCo   Follow and Review: We'd love for you to follow us if you haven't yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We'd love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.

Mantras and positive affirmations have become powerful tools in helping me find balance, harmony, and peace in my life. In this episode, I share a significant milestone for my family: my daughter Caroline is finishing college after a challenging journey. To celebrate, we're heading to Alaska for a family trip we've long dreamed of and saved for over the years. However, this exciting trip is shadowed by a deep sense of guilt. I grapple with the thought that this wonderful experience is only possible because Elizabeth is no longer with us. Despite these feelings, I hold onto the belief that Elizabeth would want us to enjoy this time together and create new memories. If you're experiencing similar emotions, remember you're not alone.   In this episode, you will hear: Why it's important to honor and celebrate significant achievements How recognizing and addressing challenging feelings is essential for emotional healing and personal growth Ways mantras and positive affirmations can help maintain balance, harmony, and peace Reasons connecting with others with similar experiences is invaluable Engage with us: Join our community: Circle of Care Visit:  https://annettehines.com Read Butterflies and Second Chances LinkedIn: @annette-hines-snc  Instagram: @parentingimpossible Facebook: @SpecialNeedsCompanies Twitter: @SpecialNeedsCo   Follow and Review: We'd love for you to follow us if you haven't yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We'd love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.

In a world where societal norms often dictate limitations based on physical abilities, Ben Lou, 20, an award-winning MIT physics and math wiz, and his mother, Jenny Huang, are beacons of hope in disability advocacy. Living with Spinal Muscular Atrophy (SMA), Ben has defied expectations and achieved remarkable success, including acceptance to MIT. With Jenny's tireless help and support, Ben scored a perfect score on his math SAT, and he now maintains a 5.0 GPA at MIT, where he is studying Math, Physics, and Philosophy and hopes to earn his PhD in Physics.   In this episode, Jenny reflects on their early years, the challenges of raising a child with a disability, and the decision to support Ben's educational aspirations at MIT. She shares the importance of never giving up, seeking help, and the continuous journey of personal growth. Ben shares the importance of setting high standards, his motivation to excel, and the impact of strong family support. Together, they discuss the role of comprehensive care and the critical need for advocacy to promote a more inclusive society.   In this episode, you will hear: How individuals with disabilities can achieve extraordinary goals. Why strong family and caregiver networks are crucial for the success of individuals with disabilities. How comprehensive care plans, including physical, emotional, and educational support, are essential for thriving with disabilities. Ways setting high standards and pursuing goals can lead to significant achievements despite physical limitations. Why planning for future independence and support ensures long-term success and well-being. Resources from this Episode: Instagram: @team.ben_ Watch Ben Lou's speech: here   Engage with us: Join our community: Circle of Care Visit: https://annettehines.com/ Read Butterflies and Second Chances LinkedIn: @annette-hines-snc  Instagram: @parentingimpossible Facebook: @SpecialNeedsCompanies Twitter: @SpecialNeedsCo   Follow and Review: We'd love for you to follow us if you haven't yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We'd love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.  

In the quiet moments of caregiving, my daughter Elizabeth showed me that the essence of success is far deeper than material achievements. In this episode of Parenting Impossible, I share the journey of raising my daughter Elizabeth, who taught me the true meaning of success. From navigating her rare mitochondrial disease to founding Special Needs Family Services, this podcast is about finding resilience and building a thriving community for special needs families. In this episode, you will hear: My reflections on what it means to be a successful and happy person, as inspired by my daughter Elizabeth. Insights into the challenges and lessons I learned from raising a child with special needs. The evolution of my advocacy work and the creation of support systems for special needs families. The launch and purpose of our membership community on Mighty Networks for real-time collaboration and support. Engage with us: Join our community: Circle of Care Visit: https://annettehines.com/ Read Butterflies and Second Chances LinkedIn: @annette-hines-snc  Instagram: @parentingimpossible Facebook: @SpecialNeedsCompanies Twitter: @SpecialNeedsCo   Follow and Review: We'd love for you to follow us if you haven't yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We'd love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.  

Turning a bedroom into a creative studio was a deeply emotional journey for Annette following the loss of her daughter. On this episode of Parenting Impossible, this powerful experience sets the stage for Annette's conversation with Beatrice Tokayer, an interior designer and mother of three, who brings her personal insights and professional expertise to designing spaces for families with special needs. Beatrice shares her unique method of using design boards, 2D layouts, and realistic 3D renderings, helping clients visualize their spaces without feeling overwhelmed.  Beatrice opens up about her motivation, which is deeply rooted in supporting her middle son, who has been diagnosed with ADHD and sensory processing disorder. She advises parents on observing and responding to their children's unique sensitivities, discussing the impact of colors, patterns, and lighting. We also explore her holistic approach to home design, emphasizing personalized, supportive spaces that cater to the entire family's needs. This episode is full of wisdom for those looking to create a nurturing and calming home environment. In this episode, you will hear: Annette's emotional journey of turning a bedroom into a creative studio following the loss of her daughter Beatrice Tokayer's unique approach to interior design using design boards, 2D layouts, and realistic 3D renderings Her advice for parents on observing and responding to children's unique sensitivities The impact of colors, patterns, and lighting on creating calming environments for children with sensory issues The importance of personalized, supportive spaces that cater to the entire family's needs Balancing the needs of all family members in shared spaces while maintaining functionality and aesthetics Virtual design services and a holistic, person-centered approach to home design Resources from this Episode BRT Interior Design website: www.brtinteriordesign.com Facebook: www.facebook.com/Brtinteriordesign Instagram: www.instagram.com/brtinteriordesign LinkedIn: www.linkedin.com/in/beatrice-tokayer-053418213 Follow and Review: We'd love for you to follow us if you haven't yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We'd love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast. Episode Credits If you like this podcast and are thinking of creating your own, consider talking to my producer, Emerald City Productions. They helped me grow and produce the podcast you are listening to right now. Find out more at https://emeraldcitypro.com Let them know we sent you.

When Eliza was diagnosed with Prader-Willi syndrome, the flood of emotions from anger to isolation was overwhelming. On this episode of Parenting Impossible, join Annette as she opens up about her personal journey and the moments that shaped her path in special needs parenting. Annette welcomes Julie Foge, a fellow special needs mom and founder of the Leaning Into Love website, to share her experiences and insights. Julie and Annette cover advocating for their children amid the chaos of daily responsibilities, underscoring choosing battles and seeking support. Julie's mission, inspired by her child's rare disease and her background as a teacher, is to create a nurturing space for parents and caregivers. With her husband's medical expertise adding another to their conversation, they dive into practical tips for managing the NICU experience, from using your voice effectively to reducing decision fatigue through community support. Julie and Annette also tackle special education advocacy, offering strategies to foster productive collaboration with educators. Discover how simple tools like an “All About Me” page can help teachers understand your child's unique needs. In this episode, you will hear: The emotional rollercoaster of parenting a child with special needs Dealing with a diagnosis of Prader-Willi syndrome and feelings of isolation The importance of advocacy in navigating daily challenges  The need for support systems for both children and parents Strategies for managing a NICU stay, including effective communication with medical staff Leveraging community support to reduce decision fatigue Techniques for successful special education advocacy, nurturing collaboration with educators, and creating personalized tools like an “All About Me” page Julie's dual perspective as a teacher and a special needs mom Insights from Julie's husband's medical background with practical advice for parents Overcoming the transition from NICU to home care, dealing with decision-making, and finding local resources for ongoing support Resources from this Episode Leaning Into Love website: www.leaningintolove.com Facebook: www.facebook.com/juliefoge Instagram: www.instagram.com/juliefoge LinkedIn: www.linkedin.com/in/julie-foge-88418b30a Pinterest: www.pinterest.com/leaningintolove Follow and Review: We'd love for you to follow us if you haven't yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We'd love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast. Episode Credits If you like this podcast and are thinking of creating your own, consider talking to my producer, Emerald City Productions. They helped me grow and produce the podcast you are listening to right now. Find out more at https://emeraldcitypro.com Let them know we sent you.

It can be difficult for families to find fitness classes oriented toward individuals with different abilities, whether neurodivergence or physical. However, an emerging fitness category is designed for those who need adaptive and inclusive therapy. On this episode of Parenting Impossible, Annette sits down with guest Karen Hurley, a physical therapist and strength and condition specialist with more than 20 years of experience. Karen received a bachelor's degree in educational studies from Brown University, where she was a varsity athlete and captain of the women's gymnastics team. She then received a master's degree in physical therapy from Boston University. Karen has worked in various settings and spent the past eight years as a districtwide physical therapist for a local school district. Karen is the founder and president of A.I.M. Therapy located in Needham, Massachusetts, which offers adaptive inclusive movement therapy, including CrossFit and functional fitness sessions for kids, teens, and adults with autism, ADHD, processing challenges, and anxiety. Annette and Karen explore Karen's background as a physical therapist, creating connections with students, and how that ultimately led to her establishing her business, A.I.M. Therapy. You'll also hear what makes CrossFit an inclusive and adaptable activity, who she works with, and what Unified Sports is. Karen explains how the goals of her business have changed since founding it, what makes A.I.M. unique, and why CrossFit benefits neurodiverse athletes. Finally, she outlines how A.I.M. meets clients where they're at, her encouragement for someone hesitant to attend these classes, and what you can do to get started with adaptive and inclusive therapy in your community. Adaptive and inclusive therapy can tremendously impact communities where it's offered. Karen Hurley is excited to share the difference it can make for individuals with different abilities. In this episode, you will hear: Karen Hurley's background working as a physical therapist with students, creating meaningful connections with them, and how that led to teaching CrossFit CrossFit as a scalable, inclusive, and adaptable activity Why Karen works primarily with individuals with disabilities and how it led her to open her own business An explanation of Unified Sports and the Special Olympics How the goals of Karen's business have changed over time because of the importance of community A.I.M. (Adaptive Inclusive Movement) Therapy and what makes it unique from other adaptive and inclusive classes A typical day at A.I.M. Therapy What differentiates adaptive and inclusive CrossFit from traditional physical therapy CrossFit's variability and how that benefits athletes with neurodiversity Relative high intensity scaled to meet you where you're at, which is functional fitness The encouragement Karen gives to those who are hesitant to attend her classes Her advice for those who would like to start their own adaptive and inclusive therapy in their communities Resources from this Episode adaptiveaimtherapy.com www.facebook.com/profile.php?id=100093139387607 www.instagram.com/aim_therapy www.linkedin.com/in/karen-hurley-9141b41a2 Follow and Review: We'd love for you to follow us if you haven't yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We'd love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast. Episode Credits If you like this podcast and are thinking of creating your own, consider talking to my producer, Emerald City Productions. They helped me grow and produce the podcast you are listening to right now. Find out more at https://emeraldcitypro.com Let them know we sent you.

Navigating the complexities of the special needs community is fraught with challenges, and the current workforce crisis in the disability sector is a cliff we're all facing together. Annette has seen firsthand how the pandemic has eroded the support program landscape as a special needs mom, attorney, and author. It's time we discuss the dire statistics and what they mean for our loved ones. The scarcity of direct support professionals (DSPs) is at a critical point.In this episode of Parenting Impossible, we're pulling back the curtain on the harsh realities service providers are grappling with, from program cuts to the tough competition for attracting dedicated workers. Yet, amidst the stark outlook, there's a glimmer of hope on the horizon.Annette is excited to share the recent settlement poised to relieve SSI beneficiaries and the proactive steps the Social Security Administration is taking to rectify overpayment issues. But let's not lose sight of the impending expiry of federal funding that could spell a reduction in community-based services. It's a heartfelt plea for awareness and action—we must bolster the ranks of DSPs and ensure the support structures our community relies on don't crumble. Your involvement is critical, and by sharing your thoughts and spreading the word, you can help ignite the changes we so desperately need.Join me in this crucial conversation, and let's pave the way toward a more supportive future for those with special needs.In this episode, you will hear:The critical workforce crisis in the disability sector post-pandemicSome personal insights from AnnetteAn examination of the direct support professional (DSP) shortage and service program cutbacksRecent settlements benefiting SSI beneficiaries and SSA's resolution of overpayment issuesThe implications of expiring federal funding from the American Rescue Plan on community-based servicesThe need for legislative action to stabilize the DSP workforce and ensure sustainable disability supportFollow and Review:We'd love for you to follow us if you haven't yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We'd love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.***Episode CreditsIf you like this podcast and are thinking of creating your own, consider talking to my producer, Emerald City Productions. They helped me grow and produce the podcast you are listening to right now. Find out more at https://emeraldcitypro.com Let them know I sent you.Have you been searching for a law firm that understands the unique challenges of your family? We can help you at Special Needs Law Group put legal planning in place to protect you and your loved ones now and in the future. Book a free call today with our team or contact us via our website: specialneeds-law.com/contact.

As the clock struck midnight, marking the start of a new year, Annette found herself immersed in a flood of memories and significant events.On this episode of Parenting Impossible, carrying the weight of sorrow from the loss of her beloved daughter Elizabeth but strengthened by ten years of affection and the development of the Special Needs Law Group, Annette extends an invitation to you to partake in a personal journey of transformation and the intricate process of decision-making that defines our lives. Annette shares a cherished story from her childhood, in which setting a butterfly free symbolized the infinite potential of wishes. This experience profoundly shaped her perception of influence and purpose in her life and career.Annette communicates her hope for the coming year—a desire for empowerment and the capability to navigate the often stormy seas of social support systems. Eager to improve this process, she is excited to announce the launch of new group coaching programs designed to offer a guiding light of support, consultation, and advice beyond the scope of traditional legal services. You will sense this podcast's renewed vigor, infused with the energy to spark change and foster connections through these shared coaching experiences.Annette welcomes everyone to join her as they confront the challenges and celebrate the victories in creating significant legacies for themselves and those they advocate for in the disability community.In this episode, you will hear:Reflections on a decade of personal milestones: the loss of Annette's daughter Elizabeth, her marriage, and the growth of the Special Needs Law GroupThe importance of transformation and the power of choices in personal and professional lifeA heartfelt letter from one of Annette's clients and the profound impact of the Special Needs Law Group on the lives of those in the disability communityAnnette's New Year's wish for empowerment and enabling individuals to navigate social support systems and take control of their futuresNew group coaching programs offering support, consultation, and guidance to those seeking to create a secure and fulfilling plan for their livesFollow and Review:We'd love for you to follow us if you haven't yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We'd love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.Supporting Resources:Sign up for the Special Needs Advocacy and Planning Masterclass AND Coaching Program: enroll.specialneedsfamilyservices.com/p/individuals-family-caregivers-cohort-group-coaching***Episode CreditsIf you like this podcast and are thinking of creating your own, consider talking to my producer, Emerald City Productions. They helped me grow and produce the podcast you are listening to right now. Find out more at https://emeraldcitypro.comHave you been searching for a law firm that understands the unique challenges of your family? We can help you at Special Needs Law Group put legal planning in place to protect you and your loved ones now and in the future. Book a free call today with our team or contact us via our website: specialneeds-law.com/contact.

Sometimes, it's essential to step back and assess the path we're on - that's exactly what I did this year. After years of fighting the impacts of a global crisis on both my personal and professional life, I made the radical decision to take a sabbatical year. A year to disconnect from “extracurriculars” and focus on my business, my team, and myself. A year to reflect on what truly brings me joy, and rediscover the activities and people I truly missed. Join me as I recount the unanticipated benefits of this self-imposed sabbatical. Listen to how I navigated the process of refocusing my energy, honing my business, and fostering team cohesion. I'll share how this radical change led to the acquisition of new skills and realizations about my membership community. As I look back at the past year, I'll discuss my plans to gradually reintroduce aspects of my life, emphasizing only those that truly bring me joy. I'll also share my plans to revamp this podcast and my community outreach. This episode is a must-listen if you've ever considered a sabbatical or a reset in your life.In this episode, you will hear:Why I decided to take a sabbatical year to refocus on my business, team, and personal growth.The impacts of the global crisis on my personal and professional life led me to the decision of a sabbatical year.Exploring new hobbies and skills, such as baking bread and playing golf.How I decided to revamp my podcast and community outreach based on the insights I gained during my sabbatical.Follow and Review:We'd love for you to follow us if you haven't yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We'd love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast. Have you been searching for a law firm that understands the unique challenges of your family? We can help you at Special Needs Law Group put legal planning in place to protect you and your loved ones now and in the future. Book a free call today with our team or contact us via our website: specialneeds-law.com/contact.