Podcasts about ndss

healing growth happy new year resolutions register perfection redefining disability becker amy julia becker ndss

Play Episode Listen Later Dec 31, 2024 54:43

Happy New Year friends! Join us as we welcome back Amy Julia Becker and her daughter Penny for an inspiring conversation on redefining resolutions for growth instead of perfection. We're talking about the power of celebrating small wins, how caregivers and families can support loved ones with Down syndrome in setting and achieving goals, and the transformative lessons we've learned from goal-setting with our children. Penny also offers her perspective on staying motivated, what success looks like to her, and what she hopes to accomplish in the year ahead. Whether you're setting goals for yourself or alongside your loved one with Down syndrome, this conversation will leave you ready to embrace every step of the journey. This is an episode you don't want to miss! SHOW NOTES Instagram: @amyjuliabecker Facebook: @amyjuliabeckerwriter YouTube Channel Threads: @amyjuliabecker X: @amyjuliabecker amyjuliabecker.com Our Previous Episodes with Amy Julia: 247. The Transition To Adulthood: Fostering Independence, Dignity Of Risk, & Supporting Decision-Making (w/ Amy Julia Becker) 158. Faith, Healing, & Disability, ft. Amy Julia Becker (Mother/Autho 26. Owning Your Influence By Using Your Words with Amy Julia Becker Thank you, NDSS for sponsoring this episode! Register today for the 2025 Down Syndrome Advocacy Conference! Early bird registration is now open! JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today! DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code LUCKY for 21% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! --- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

287. Embracing “Good Enough” Holidays

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Play Episode Listen Later Dec 10, 2024 53:41

How do you handle the grief that comes with unmet holiday expectations? As we dive into the holiday season, many of us wrestle with the dream of a “perfect” celebration that doesn't match reality. In this episode, we're having an honest conversation about releasing those high expectations, navigating the challenges and grief that come with letting go of the idealized holiday image, and discovering joy in what is rather than what could have been. From coping with unplanned moments to redefining traditions and setting boundaries with family, we're exploring how to create a meaningful, authentic holiday season that works for you. Don't miss this heartfelt discussion! - - - - - - SHOW NOTES 236. Making Space For Grief (w/Claire Bidwell Smith) 235. All The “Big Feelings” 192. Tis' the Season! JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today! DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code LUCKY for 21% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! THANK YOU TO OUR SPONSORS: Thank you, Enable SNP for sponsoring this episode! 47. Planning for the Future w/Phillip Clark from Enable SNP 191. Future Planning for the WHOLE Family - ft. Phillip Clark, Enable SNP Thank you, NDSS for sponsoring this episode! Register today for the 2025 Down Syndrome Advocacy Conference! Early bird registration is now open! LET'S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. --- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

BONUS. Dreaming Big and Showing Up From The NDSS Adult Summit

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Play Episode Listen Later Nov 28, 2024 49:21

That's right friends, we've got a BONUS episode for you this week! Today, we're bringing you our closing keynote from the NDSS Adult Summit, we're sharing our takeaways from the weekend, practical tips, and tools for building a future that people with Down syndrome deserve. From dreaming about employment and supporting Down syndrome-owned businesses to creating transition plans and embracing independence, this episode is packed with inspiration and actionable steps. You'll also hear from incredible advocates sharing their hopes and dreams for the next generation of people with Down syndrome. This is your reminder that your voice, your story, and your advocacy matter! - - - - SHOW NOTES Links from our Favorite Tips & Tools from the Adult Summit! Dream about employment. Sit down with a loved one and write down your future dreams and goals for employment. NDSS has resources and templates for future planning, entrepreneurship, starting a business with your family, and more! Check out their website to get started! Support businesses owned and run by people with Down syndrome. Follow them on social media, sign up for their newsletter, purchase their products, and share with family and friends. Friends, this holiday season, take a look at the NDSS interactive holiday gift guide to help you find businesses to support! Apply for an ABLE account (tax advantaged saving account for individuals with disabilities) Sign up to be part of research. Stay up to date with research. Did you know NDSS even has a research studies page on their website where you can search by age and sign up for their newsletter where they send out new research opportunities from time to time! Look into the Alzheimer's research, if you are 35 or older talk to your doctor about Alzheimer's disease and prevention. NDSS resources and Adult Down Syndrome center website has a resource gallery with videos and worksheets on dating, puberty, social boundaries, and more. Make a transition plan. Contact your department of rehabilitation. Pick up transition guide from NDSS table or download online. Take a step towards independence. Is there an area of life you dream of having more independence? Living alone? Making your lunch? Navigating your community? Initiating social fun with friends? Sit down with your loved ones and make a plan for the next steps to meeting that goal. Sign up for the NDSS Advocacy conference. April 28-30. Watch the new NDSS PSA Town 21 Listen to EP 284 Why Does Inclusion for People with Down Syndrome Have to be a Distant Dream? Thank you to Camilynne Photography for capturing so many of our Adult Summit memories! JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today! DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! LET'S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. --- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

285. The World We Deserve: LIVE From The NDSS Adult Summit

Play Episode Listen Later Nov 26, 2024 66:27

Friends, we had an epic time at the National Down Syndrome Adult Summit in Costa Mesa, CA! It's a weekend of connection and educational sessions on a variety of topics that address adulthood and aging for the disability community. We had the honor of helping to launch the NDSS Town 21 PSA and spoke with Town 21 news anchor Jessica Kishner about her role in the video, her passion for music, and her dreams. We also got the chance to talk with NDSS President Kandi Pickard and the creator of the NDSS Adult Summit, Jadene Ransdell, about the importance of dreaming big and creating opportunities. Together, we reflected on how we can take the energy and education from this weekend to better support adults with Down syndrome. This episode captures the inspiration, hope, and energy of the weekend and we're so excited to share it with all of you! This is an episode (and weekend) you don't want to miss! - - - - SHOW NOTES Watch the new NDSS PSA Town 21 Our episode with BTS of Town 21 on EP 284 Why Does Inclusion for People with Down Syndrome Have to be a Distant Dream? Our episode with Kandi Pickard celebrating their 45th anniversary: 262. 45 Years of Advocacy: A Conversation w/ NDSS President Kandi Pickard Our episode with Alex Bolden (who is in the closing scene): 277. Can A Person With Down Syndrome Vote? (w/Alex Bolden & Genevieve Thompson) Thank you to Camilynne Photography for capturing so many of our Adult Summit memories! JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today! DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! LET'S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. --- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

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284. Why Does Inclusion for People with Down Syndrome Have to be a Distant Dream?

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Play Episode Listen Later Nov 19, 2024 77:02

We've talked about impactful PSAs that the Down syndrome community has put out over the years. Today we're talking about the most recent PSA from our friends over at the National Down Syndrome Society, if you haven't seen it already follow the link in our show notes and go watch their powerful, important, and impactful message and listen to some behind-the-scenes interviews on this weeks episode! We're chatting with the president of NDSS Kandi Pickard, an amazing couple Jeremy and Audrey featured in the wedding scene, and Jamie Weitzman whose kiddos Hannah and Jedidiah were featured in the crowd at the wedding! We're talking about every little detail, why it matters, and what we can do to help create this world that we all dream of for people with Down syndrome and that people with Down syndrome and disabilities deserve. This is an episode you don't want to miss! - - - - - - SHOW NOTES Watch the new NDSS PSA Town 21 NDSS 2018 PSA Bridging the Gap Watch the NDSS 40th Anniversary PSA Check out Jeremy & Audrey's Non-Profit Down Syndrome Rocks Our episode with Kandi Pickard celebrating their 45th anniversary: 262. 45 Years of Advocacy: A Conversation w/ NDSS President Kandi Pickard Our episode with Alex Bolden (who is in the closing scene): 277. Can A Person With Down Syndrome Vote? (w/Alex Bolden & Genevieve Thompson) Our episode with Matthew & Lucia: 244. Love, Advocacy, & A Viral Proposal (w/Matthew Schwab & Lucia Romano) Our episode with Craig & Heather: 231. Love, Marriage, & Eqaulity w/ Craig & Heather (w/Moms Lisa & Pat) JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today! DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! THANK YOU TO OUR SPONSORS: Thank you, Enable SNP for sponsoring this episode! 47. Planning for the Future w/Phillip Clark from Enable SNP 191. Future Planning for the WHOLE Family - ft. Phillip Clark, Enable SNP Thank you, ABLEnow for sponsoring this episode! 115. How The ABLE Act Supports Your Child's Future (ft. Catherine Beck) LET'S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. --- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

283. Navigating Tube Feeding With Down Syndrome (w/Dr. Lauren Fiechtner)

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Play Episode Listen Later Nov 12, 2024 36:40

Nutrition is key to a child's development, but for some children with Down syndrome, feeding challenges make it difficult to get the nutrition they need. That's where tube feeding comes in. Today, we're chatting with Dr. Lauren Fiechtner, Director of Nutrition at Mass General for Children, to talk about the different types of feeding tubes, why they are sometimes necessary, and the unique feeding challenges that children with Down syndrome may face. We're chatting about when tube feeding is typically used, the emotional and physical challenges parents may experience, and how feeding therapies and supportive resources can make a difference. We hope Dr. Fiechtner's compassionate advice helps families feel empowered and reassured as they navigate tube feeding and nutrition. - - - - - SHOW NOTES Learn more about Feeding Matters Learn more about The Oley Foundation JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today! DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! THANK YOU TO OUR SPONSORS: Thank you, National Down Syndrome Society for sponsoring this episode! Check out episode 174 on The Down Syndrome Learning Profile Check out episode 181 with NDSS team member Dana Sciullo and her brother Anthony! Check out episode 262 with NDSS President Kandi Pickard celebrating their 45 years of advocacy! Thank you, Enable SNP for sponsoring this episode! 47. Planning for the Future w/Phillip Clark from Enable SNP 191. Future Planning for the WHOLE Family - ft. Phillip Clark, Enable SNP LET'S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. --- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

282. Adoption, Purpose, and the Founding of RODS Heroes (w/Brady Murray)

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Play Episode Listen Later Nov 5, 2024 53:20

Happy first week of November AND National Adoption Month! Today we're thrilled to welcome Brady Murray, the passionate founder of RODS Heroes. Brady's nonprofit has helped hundreds of children with Down syndrome find loving homes around the world. As a father of eleven—including two children with Down syndrome—Brady shares his personal journey with adoption, from being adopted himself to adopting seven of his children from around the globe. Hear the inspiring story behind how a triathlon became the seed for RODS Heroes, the miracles he's witnessed along the way, and why he believes that when we invest in causes greater than ourselves, we experience incredible transformation. This is an episode you don't want to miss! - - - SHOW NOTES Learn more about RODS Heroes Follow RODS Heroes on Instagram and Facebook Follow Brad Murray on Instagram Follow Cooper Murray on Instagram NBC Nightly News story of Cooper Murray throwing out MLB first pitches JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today! DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! THANK YOU TO OUR SPONSORS: Thank you, National Down Syndrome Society for sponsoring this episode! 174. Learning About the Down Syndrome Learning Profile! (ft. Jessica Kuss from the National DS Society) 181. How has your sibling changed your life? (ft. Dana & Anthony Sciullo from the NDSS team) 262. 45 Years of Advocacy: A Conversation w/ NDSS President Kandi Pickard Thank you, ABLEnow for sponsoring this episode! 115. How The ABLE Act Supports Your Child's Future (ft. Catherine Beck) LET'S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. --- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

281. Can A Person With Down Syndrome Shift Narratives? (w/ Hilary Gauld & Kate Herron)

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Play Episode Listen Later Oct 29, 2024 55:41

This month we've celebrated Down Syndrome Awareness Month with episodes based on popular Google search topics! Today we're joined by award-winning photographer Hilary Gauld and advocate Kate Herron for this episode all about answering the question: Can a person with Down syndrome Shift Narratives? In 2014, Hilary and Kate collaborated on a fundraising calendar featuring Kate's 10-month-old son, Caleb, for the Waterloo Wellington Down Syndrome Society (WWDSS). What began as a local project quickly grew into a decade-long advocacy journey, evolving into an internationally recognized series that challenges stereotypes and represents the Down syndrome community in meaningful, thought-provoking ways. Hilary's sharing how her friend Kate's invitation sparked her dedication to authentically representing the Down syndrome community, the impact her work has had on families seeing themselves and their loved ones reflected in media, and the powerful role of storytelling in breaking down barriers. We're also chatting about their documentary Decade, which celebrates the ten years of this incredible project, the impact the last ten years have had on their advocacy, what they hope for the future, and so much more! Friends, this is an episode you don't want to miss! - - - SHOW NOTES Follow One For The Wall on Instagram and Facebook Follow Waterloo Wellington Down Syndrome Society on Instagram Learn more about Decade documentary Check out the ‘Here I Am' series People Magazine article about the series ‘Believe in Me' Check out all the incredible series from One For The Wall JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today! DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! THANK YOU TO OUR SPONSORS: Thank you, National Down Syndrome Society for sponsoring this episode! 174. Learning About the Down Syndrome Learning Profile! (ft. Jessica Kuss from the National DS Society) 181. How has your sibling changed your life? (ft. Dana & Anthony Sciullo from the NDSS team) 262. 45 Years of Advocacy: A Conversation w/ NDSS President Kandi Pickard Thank you, Enable SNP for sponsoring this episode! 47. Planning for the Future w/Phillip Clark from Enable SNP 191. Future Planning for the WHOLE Family - ft. Phillip Clark, Enable SNP LET'S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. --- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

277. Can A Person With Down Syndrome Vote? (w/Alex Bolden & Genevieve Thompson)

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Play Episode Listen Later Oct 1, 2024 27:00

Happy Down Syndrome Awareness Month!! We're celebrating this month with episodes based on popular Google search topics about people with Down syndrome. Today we're kicking off the celebration with Alex Bolden and Genevieve Thompson from the National Down Syndrome Society as we answer one of the most searched questions: Can a person with Down syndrome vote? Alex shares his experience voting for the first time, tips for deciding who to vote for, and resources like NDSS's free checklist and values inventory to help voters prepare. We also discuss how parents and caregivers can support their loved ones in the voting process and the importance of using your voice to shape policies that impact the Down syndrome community. This is an episode you don't want to miss as we head to the polls next month! --- SHOW NOTES Check Out NDSS Voting Resources: Downloadable checklist Downloadable Values and Beliefs Inventory More Resources To Check Out: Self-Advocates Becoming Empowered (SABE) GoVoter campaign National Disability Rights Network (NDRN) voting resources Voter Registration Deadlines for all states JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today! DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! THANK YOU TO OUR SPONSORS: Thank you, Jack's Basket for sponsoring this episode! EP 44 Shifting the Diagnosis Narrative w/Carissa Carroll from Jack's Basket EP 180 "You Make Me Better" (An Interview with Carissa Carroll, Founder of Jack's Basket) Thank you, Enable SNP for sponsoring this episode! 47. Planning for the Future w/Phillip Clark from Enable SNP 191. Future Planning for the WHOLE Family - ft. Phillip Clark, Enable SNP LET'S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. --- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

267. What Is It Like To Have A Sibling With Down Syndrome? (Featuring Our Kids!)

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Play Episode Listen Later Jul 23, 2024 59:08

Friends, the last two weeks we got to hear from some amazing siblings. Today we hope you'll join us for a very special episode, we're sitting down with our kids to talk about what it's like to have a sibling with Down syndrome. Micha chats with Ace's older brother Brooks (13), Mercedes sits down with Sunny's younger brothers Rhodes (9) and Shepard (7), and Heather with Macy & August's sister Truly (13)! They're sharing the things they love to do with their siblings, the advice they'd give other kids who have a brother or sister with Down syndrome, and so much more! From the everyday moments to the life lessons learned, we're sharing it all in these candid conversations with our kids. Listening to the way they describe their relationship with their siblings and the beautiful connections they each have makes us all appreciate the unique bonds that define our families even more. This is an episode you don't want to miss! - - - - SHOW NOTES Our July episodes with siblings Matthew & Thomas Von Der Ahe and Taylor Gardner Chaney: 265. Brotherly Love: From Childhood Adventures to Adult Dreams (w/Matthew & Thomas Von Der Ahe) 266. From Sibling Love to Community Change (w/Taylor Gardner Chaney) More episodes with the sibling perspective: 2. Siblings and Special Guests 93. The (Older) Sibling Perspective, ft. Pat Ramirez 157. Sibling Dynamics & Down Syndrome 181. How has your sibling changed your life? (ft. Dana & Anthony Sciullo from the NDSS team) JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today! DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! LET'S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. --- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

266. From Sibling Love to Community Change (w/Taylor Gardner Chaney)

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Play Episode Listen Later Jul 16, 2024 65:00

Today we're chatting with another amazing sibling! Taylor Gardner Chaney is a passionate entrepreneur whose younger sister with Down syndrome has influenced her understanding of disabilities and guided her career choices. Taylor discusses viewing life as a series of seasons and how focusing on the "why" behind her work helps her push through challenging times. We explore the realization that siblings with disabilities often don't have the same choices and opportunities as those without, and how this awareness has shaped Taylor's perspective. She's sharing her journey advocating and her “why” behind starting The Garden Foundation LV, which provides resources and opportunities for individuals with disabilities. Friends, this is an episode packed with advice on sibling relationships, entrepreneurship, inclusion, and the power of community. This is another episode you don't want to miss! - - - - SHOW NOTES Follow Taylor on Instagram Follow Dig it! Coffee Co on Instagram and check out their website Follow The Garden Foundation LV on Instagram and check out their website More episodes like this! Listen to last week's episode with brothers Matthew & Thomas Von Der Ahe for another sibling perspective! 2. Siblings and Special Guests 93. The (Older) Sibling Perspective, ft. Pat Ramirez 157. Sibling Dynamics & Down Syndrome 181. How has your sibling changed your life? (ft. Dana & Anthony Sciullo from the NDSS team) More information and register for DSDN's Rockin Mom's Retreat in Las Vegas September 27-28! JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today! DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! LET'S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. --- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

263. Designs that Dance: A Tale of Friendship and Creativity (w/Dance Happy Designs)

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Play Episode Listen Later Jun 25, 2024 55:59

Today, we're chatting with the creative minds behind Dance Happy Designs! Emily Scott is here to chat with us about the power of inclusive entrepreneurship, friendship, and creativity and share some of co-founder Julia's thoughts on their friendship and partnership, plus what her favorite design is! Emily shares their experiences creating high-quality, amazing designs and fostering an inclusive movement that centers and honors people with disabilities. Hear about their achievements, including being named a Tory Burch Foundation fellow, securing deals with Nordstrom and Aerie, and their commitment to collaborating with the Down Syndrome community. Plus, we hear about some new products AND they share an exclusive discount with our listeners! --- SHOW NOTES Exclusive 21% off Dance Happy Designs for our listeners if you use THELUCKYFEW Shop Dance Happy Designs Shop the Dance Happy Designs and NDSS collab Shop Julia's Favorite Design Incana Follow Dance Happy Designs on Instagram and Facebook Learn more about The Tory Burch Foundation Fellowship JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today! DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! LET'S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. --- Send in a voice message: https://podcasters.spotify.com/pod/show/theluckyfewpod/message Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

262. 45 Years of Advocacy: A Conversation w/ NDSS President Kandi Pickard

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Play Episode Listen Later Jun 18, 2024 57:31

We've been so grateful to have had the opportunity to collaborate with National Down Syndrome Society (NDSS) over the last few years. Today, we're chatting with Kandi Pickard, the President & CEO of NDSS, and celebrating their 45th Anniversary coming up on June 20th! Kandi is sharing the organization's journey from a support group that has grown into a major policy and advocacy organization, she shares her experience from becoming a volunteer to taking over as President & CEO, and what the future holds for NDSS! We chat about the honor of learning from and advocating alongside self-advocates, and the commitment NDSS has to representing the beauty and diversity of the Down syndrome community. We're so grateful for the vital work they do to support and create opportunities for the community, tune in and be inspired by Kandi's dedication and vision for the future of NDSS! --- SHOW NOTES Learn more about the National Down Syndrome Society (NDSS) Find NDSS on Facebook, Instagram, X, Tik Tok, YouTube, and LinkedIn Learn more about the history of NDSS Learn more about this year's 30th NYC Buddy Walk Learn more about the NDSS Policy Program Learn more about ABLE Accounts Learn more about this year's Adult Summit Learn more about the first Barbie with Down syndrome Download the New And Expectant Parent's Guide Check out our past episodes with Kayla McKeon & Charlotte Woodward: 17. Self Advocacy - Down Syndrome in DC with Kayla McKeon! 92. Politics & Down Syndrome w/Kayla McKeon & Ashley Helsing 160. Organ Transplant Discrimination Against People with Disabilities (ft. incredible advocates!) 204. Self-Advocates On Capitol Hill w/Kayla McKeon, Matthew Schwab, & Charlotte Woodward Check out our episode from last year's Buddy Walk: 225. NYC Buddy Walk Highlights Learn more about the National Down Syndrome Congress (NDSC) JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today! DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! LET'S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. --- Send in a voice message: https://podcasters.spotify.com/pod/show/theluckyfewpod/message Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

S4 Ep_036 Creating the Down Syndrome Inclusive Education Guidelines, with Emily Mondschein of GiGi's Playhouse, Buffalo NY, Pt.3

Towards a Kinder Public

Play Episode Listen Later Mar 19, 2024 31:27

What does inclusion mean, in the education setting? Is there data that supports inclusive education for individuals with Down syndrome? Emily Mondschein, Executive Director at GiGi's Playhouse Buffalo, and member of the National Down Syndrome Society (NDSS) and Down Syndrome Education International (DSEI) inclusive education working group, explains the story behind the first inclusive education document for Down syndrome in the United States, which she also presented to the United States Congress. We discuss:-Why inclusion in the education setting is particularly important and powerful for learners with Down syndrome;-How Emily became acquainted with Professor Sue Buckley (UK), the foremost international expert on learning, literacy, and language for individuals with Down syndrome;-The NDSS and DSEI working group's adaptation of the UK's All Party Parliamentary Group on Down Syndrome (APPDSG 2012) inclusion guidelines for the United States;-How the Down Syndrome: Guidelines for Inclusive Education document can be used on the federal, state, county, school district, classroom, and family levels;-The profound and measurable ways that inclusion benefits typically developing students and the entire community.(See Episode Website link below for a transcript, YouTube episode with captioning, background information and links.)About Us Follow Us On InstagramIf you would like to share your thoughts with us, suggestions for future episodes or if you're interested in joining us as a guest, please contact us as we would welcome your contributions.Contact Us: podcast@kinderpublic.com

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Down syndrome, leadership & advocacy – with David Egan

Beyond 6 Seconds

Play Episode Listen Later Mar 18, 2024 15:00

David Egan is a leader and advocate who promotes the causes of people with disabilities. He is the first person with Down Syndrome to serve as a Joseph P. Kennedy Jr. Public Policy fellow on Capitol Hill and with the National Down Syndrome Society (NDSS). As a Special Olympics athlete and International Global Messenger, David has traveled extensively and speaks to diverse audiences, including the U.S. Senate, United Nations, and various universities, nonprofit and for-profit companies. David has also received many awards throughout his career. He was honored by NDSS for his legacy, presented with the American Association for Intellectual Disabilities Media Award, and received the Global Down Syndrome Foundation's highest honor: the Quincy Jones Exceptional Advocacy Award. As the author of the book “More Alike Than Different: My Life with Down Syndrome,” he inspires his audiences to see our shared humanity and focus on abilities and possibilities rather than limitations. During this episode, you will hear David talk about: Growing up with Down Syndrome, and his biggest dreams as a child How he learned to accept his disability What he enjoyed about working at Booz Allen Hamilton, CBRE, and SourceAmerica His experience as a Joseph P. Kennedy Jr. Public Policy fellow How he became a disability advocate The impact of Special Olympics on his life To learn more about David and his work, visit his website at DavidEganAdvocacy.com and buy his book, “More Alike Than Different: My Life with Down Syndrome.” Watch the video of this interview on YouTube. Read the episode transcript. Follow the Beyond 6 Seconds podcast in your favorite podcast player. Subscribe to the FREE Beyond 6 Seconds newsletter for early access to new episodes. Support or sponsor this podcast at BuyMeACoffee.com/Beyond6Seconds! *Disclaimer: The views, guidance, opinions, and thoughts expressed in Beyond 6 Seconds episodes are solely mine and/or those of my guests, and do not necessarily represent those of my employer or other organizations.*

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Christmas Blitz Extravaganza - #799 Part 1

Jim and Them

Play Episode Listen Later Dec 24, 2023 98:50

TOTS SHOPPING: We have reports from the frontlines as we breakdown our shopping spree this year for the TOTS thanks to all of your generous donations! It was a great year! THE BLITZ: Not only did we get to shop for the TOTS, but this year we were able to go out with the fire department and hand the toys out to the TOTS directly! Also, tis the season for forgiveness? We get a call from THE NMAN! Gifts: The boys exchange Christmas gifts, LOOK HOW SWEET WE ARE!? LET'S JUST TALK!, BOOGIE NIGHTS!, DON CHEADLE!, MERRY CHRISTMAS!, CHRISTMAS EXTRAVAGANZA!, CHRISTMAS SHOPPING!, PIECE OF ASS!, TOTS TURNT!, DONATIONS!, PUT A GRAND ON IT!, DESMOND!, INSANE!, THANK YOU!, SHOPPING SPREE!, THE BOY BLUE!, 5 DOLLARS!, TIS THE SEASON!, TIME FOR GIVING!, TARGET!, SHOPPING SPREE!, THE CHARLESTON!, TED LASSO!, SPOONFUL OF TRUTH SOUP!, ONLYFANS THOT BARBIE!, SINGLE MOTHER!, BILL!, ALF!, DELETED SCENES!, NEW BARBIE!, REPRESENTATION!, NDSS!, FIREFIGHTER CALENDAR!, TECH SAVVY!, FILMING!, LOCAL NEWS!, CAMERA RIGS!, GAMETIME!, THE NMAN!, EQUAL PARTNERSHIP!, APOLOGY!, BEEF SQUASHED!, ZOINK!, SUMMER OLYMPICS!, TEXANS!, LIVEMAS!, FIRE ENGINE PARADE!, HANDING OUT GIFTS!, HAPPY LITTLE KIDS!, SEBRING!, SKATEBOARD!, RAZER SCOOTER!, TONKA TRUCK!, RULES!, CHANGE SHIRTS!, COLORING BOOKS!, SPORT GEAR!, BASKETBALLS!, FOOTBALLS!, POGATS!, SCHIZ NASTY!, CHRISTMAS CARDS!, BAM!, HEARTAGRAM!, RUCKING FOTTEN!, HALLOWEEN!, EVERYTHING EVERYWHERE!, LIGHTSABER!, TRACK SUITS!, KYLO REN!, WAWA!, BUC-EES!, SEINFELD!, GEORGE!, IMPRESSION!, LOGO!, GOOSE!, YOUNG KIDS!, POPPY PLAYTIME!, EDGELORDS!, N-WORD!, SIMPS!, MAYOR FOX!, MOMMY LONG LEGS!, CREEPY PASTA! You can find the videos from this episode at our Discord RIGHT HERE!

Mu Zhang, Backtracking Intrusions in Modern Industrial Internet of Things

If We Knew Then - Down Syndrome Podcast

Play Episode Listen Later Dec 6, 2023 51:03

Advanced Persistent Threat (APT) attacks are increasingly targeting modern factory floors. Recovery from a cyberattack is a complex task that involves identifying the root causes of the attack in order to thoroughly cleanse the compromised systems and remedy all vulnerabilities. As a result, the provenance analysis, which can correlate individual attack footprints and thus "connect the dots", is very much desired. Provenance analysis has been well studied in traditional IT systems, yet the OS-level attack model, prior work employs, cannot effectively capture application semantics in physical control systems. Recent efforts have been made to develop custom provenance models that uniquely represent physical attacks in cyber-physical systems. Nevertheless, existing techniques still fall short due to their unreliable semantic recovery, inability to reconstruct process contexts, and lack of cross-domain causality tracking. In this talk, we present ICSTracker, which aims to enable provenance analysis in the new setting of industrial IoT. To recover the physical semantics of controller routines, we utilize data mining to identify function call sequences that align with specific physical actions. To establish the process contexts, we resort to the data access patterns in controller code to discover and keep track of critical state variables that are shared among multiple iterations of control logic. To uncover the methods attackers employ in exploiting digital vulnerabilities to cause physical damage, we perform a cross-domain causality analysis, associating controller operations with OS-level events through their mutual access to shared digital assets. We have implemented and tested ICSTracker in a FischerTechnic testbed. Our preliminary results are promising, demonstrating that ICSTracker can precisely capture cross-domain cyber-physical attacks in a semantics and context-aware fashion. About the speaker: Mu Zhang is an Assistant Professor with the Kahlert School of Computing at the University of Utah. Zhang works at the unique intersection between systems security and cyber-physical systems. He is the lead PI of the DARPA HACCS project Semantics-Aware Discovery of Advanced Persistent Threats in Cyber-Physical Systems, which aims to detect advanced attacks in CPS settings. He has also been key personnel on the NSF CPS Frontiers project, Software Defined Control for Smart Manufacturing Systems, and has led the technical effort to develop a security vetting system for controller programs. Zhang has extensively published in top-tier security venues (S&P, CCS, NDSS), and received an ACM SIGSOFT Distinguished Paper Award at ISSTA 2023, an ACM SIGPLAN Distinguished Paper Award at OOPSLA 2019, and a Best Paper Honorable Mention at CCS 2022.

151. The New York City Buddy Walk and Times Square Video with Abby Brandon-Livits and Misty Adams

Play Episode Listen Later Aug 7, 2023 54:44

This week we are joined by Abby Brandon-Livits and Misty Adams from the National Down Syndrome Society to talk about the 2023 NYC Buddy Walk and it's wonderful Times Square Video presentation that redefines the image of the Down syndrome community. NYC Buddy Walk website: https://give.ndss.org/event/2023-new-york-city-buddy-walk-r/e478474 National Down Syndrome Society: www.NDSS.org FaceBook: https://www.facebook.com/NDSS1979 Instagram: https://www.instagram.com/ndssorg/ Episode Transcript: https://ifweknewthen701833686.wordpress.com/2023/08/06/151-nyc-buddy-walk/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

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THROWBACK: Organ Transplant Discrimination Against People with Disabilities (ft. incredible advocates!)

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Play Episode Listen Later Jan 3, 2023 54:47

Did you know that individuals with Down syndrome are frequently denied organ transplants? Just because they have a disability. We can't believe this is a thing that's still happening, but we are SO glad that there are people pushing back on this discrimination. Today in this episode, we are sharing two very important interviews with some extraordinary activists: Charlotte Woodward (NDSS employee + self-advocate w/DS), Bart Devon (senior director of public policy at NDSS), & Christy Sellers (lucky mama of 4 with DS + advocate). We're talking about the Charlotte Woodward Organ Transplant Discrimination Prevention Act, Glory's Law, the fear and ignorance that has caused this discrimination, and the recent tragedies in the DS community that have added momentum to this movement. It's time to call your senators and sign up for the NDSS action alerts! Listen to this episode to learn more and get involved. -- SHOW NOTES Visit ndss.org to learn more about all the wonderful things the National Down Syndrome Society is doing and follow them on Instagram. Take action on the Charlotte Woodward Organ Transplant Discrimination Prevention Act HERE! Keep up with Christy and her family on Facebook - Sellers Magnificent Seven Listen to our previous episodes about organ transplant discrimination prevention + politics in the DS community. 140. Heart Transplant Discrimination Against People with Down Syndrome (Trigger Warning: Infant Loss) 92. Politics & Down Syndrome w/Kayla McKeon & Ashley Helsing 17. Self Advocacy - Down Syndrome in DC with Kayla McKeon! LET'S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! --- Send in a voice message: https://anchor.fm/theluckyfewpod/message Support this podcast: https://anchor.fm/theluckyfewpod/support

Episode 21 | Holiday Special Chrometono Winner | Special Interview with Dee Bradley Baker

The Dad Batch

Play Episode Listen Later Dec 25, 2022 46:20

Episode 21 Round table/Updates Holiday Special Chrometono winner announcement with IndieSpeeder and NDSS. In the Marauder with Dee Bradley Baker. email: dadbatchpod@gmail.com https://linktr.ee/dadbatchpod

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How Employees with Disabilities Can Help Solve the Labor Shortage with Kandi Pickard, President and CEO, National Down Syndrome Society

The Hire thru Retire Podcast

Play Episode Play 44 sec Highlight Listen Later Nov 29, 2022 15:13 Transcription Available

In this episode Bill is joined by Kandi Pickard, President, and CEO of the National Down Syndrome Society (NDSS), the leading human rights organization for all individuals with Down syndrome. While the topic of disability inclusion has been discussed before on the podcast, this episode is centered on the labor market and more specifically a focus on the disability community, an important yet greatly underutilized resource in addressing the increased demand for talent many employers face today. Kandi joins Bill to talk further about opportunities for employers to ensure they're not only looking to the broad community when it comes to hiring practices, but also to ensure that the workplace itself becomes an area for all individuals to thrive. Bill Harmon is a registered representative of Voya Financial Partners, LLC (member SIPC). NDSS is not a member of the Voya® family of companies. CN2606635_1124

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Episode 55 The NYC Buddy Walk & Times Square Video

Gettin' Down with Down Syndrome

Play Episode Listen Later Oct 9, 2022 21:57

Have you heard of the NYC Buddy walk or their amazing video that is played on times square? In this episode we talk with the directors of this amazing event from the NDSS. Listen to how you can have your child featured in the video! Are you ready to get down!

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181. How has your sibling changed your life? (ft. Dana & Anthony Sciullo from the NDSS team)

Down Syndrome Center of Western Pennsylvania Podcast

Play Episode Listen Later Oct 4, 2022 44:30

Happy Down Syndrome Awareness Month! We're celebrating all month long with guests who are rockin' an extra chromosome! And today we have a very special sibling duo.. Anthony & Dana Sciullo from @ndssorg! Ever wondered what sibling relationships will look like when your kids with and without DS are all grown up.. our guests today are giving us a little sneak peek! Plus, we're getting real about what it's like to grow up with a sibling who has Down syndrome. We're chatting about the pressure of being a sibling to someone with a disability, the jealousy you feel when your sibling seems to get more attention, and the guilt you carry for receiving more opportunities than your sibling. There's a lot to unpack here, friends. But no matter what, we believe that siblings with DS make our lives better. For anyone out there wondering how to foster these sibling relationships, we hope you enjoy this episode! SHOW NOTES Keep up with the National DS Society! IG: @ndssorg Website: ndds.org Keep up with our guests! Email Dana at dsciullo@ndss.org Read Unbound: The Life and Art of Judith Scott by Joyce Scott LET'S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! --- Send in a voice message: https://anchor.fm/theluckyfewpod/message Support this podcast: https://anchor.fm/theluckyfewpod/support

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#141 - National Down Syndrome Society (NDSS)

Play Episode Listen Later Sep 29, 2022 14:52

Kandi Pickard, President and CEO of the National Down Syndrome Society, joined the podcast as part of our series on the national organizations who serve people with Down syndrome. You can find more information about NDSS here (https://www.ndss.org). If you have a podcast topic you would like us to address, please email DownSyndromeCenter@chp.edu. If you would like to partner with us in the work of the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter. Thank you to “Caring for Kids” The Carrie Martin Fund for its support of the Down Syndrome Center Podcast.

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178. Healthy (and happy) Aging for Adults with DS - Ft. Margot & Bart from the National DS Society

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Play Episode Listen Later Sep 13, 2022 44:08

Did you know? The life expectancy for individuals with Down syndrome has increased from age 25 in 1980 to age 60 today. That means that people with DS have more opportunities today than ever before. While we celebrate this growth, we also know that aging brings about new challenges.. How does an extra 21st chromosome increase the likelihood for Alzheimer's? Do the laws in place to promote healthy aging include adults with DS? What happens when adults with DS outlive their parents? These are questions that have never been asked before. And we're thankful for organizations like the National DS Society (NDSS) who aren't afraid to start the conversation! Today on the show we have Margot Rhondeau and Bart Devon from the NDSS to chat about how to support our loved ones with Down syndrome as they age (starting now!), how to be intentional about physical, mental, brain, and social health, and how to celebrate the joys of the aging process (for adults with DS and ourselves too). This episode is full of info + resources, check it out! -- SHOW NOTES Keep up with NDSS and Healthy Aging Month! IG: @ndssorg Website: ndss.org Health initiatives Resources 3, 2, 1, go! DS and Alzheimers LET'S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! --- Send in a voice message: https://anchor.fm/theluckyfewpod/message Support this podcast: https://anchor.fm/theluckyfewpod/support

Progress? Certainly. But has the Americans with Disabilities Act changed the country enough?

Equal Time with Mary C. Curtis

Play Episode Listen Later Aug 30, 2022 38:40

Marking its 32nd anniversary this year, the Americans with Disabilities Act has inspired the world to see disability through the lens of equity, opening opportunities for persons with disabilities to contribute to our global progress. But, from creating more consistency for academic accommodations to providing additional employment opportunities, what needs to be done in the next 32 years and beyond? “Equal Time” host Mary C. Curtis talks with Nicole Patton, the Manager of State Government Relations at the National Down Syndrome Society, and Charlotte Woodward, the Education Program Associate for NDSS. Charlotte, who was born with Down syndrome, as well as a heart condition, is one of the few people born with Down syndrome to receive a life-saving heart transplant. She went on to graduate Summa Cum Laude from George Mason University with a bachelor's degree in sociology, with a concentration in inequality and social change.

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Equal Time with Mary C. Curtis: Progress? Certainly. But has the Americans with Disabilities Act changed the country enough?

CQ on Congress

Play Episode Listen Later Aug 30, 2022 39:25

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174. Learning About the Down Syndrome Learning Profile! (ft. Jessica Kuss from the National DS Society)

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Play Episode Listen Later Aug 16, 2022 43:02

We know that going #BackToSchool isn't always easy.. so we're here to support you! We have Jessica Kuss (the Senior Manager of Education Programs for the National Down Syndrome Society - no big deal right!) on today's episode. She is a mother of 2 (including a son with DS) + a former special educator! Jessica was even part of the team at NDSS who just released the Inclusive Education Guidelines, a document FULL of relevant info for parents and educators. Today, we're chatting all about what's inside this document.. everything from the Down syndrome learning profile (knowing about this is a game changer) to the gaps in our IDEA laws, and what on earth we should do with all this info! Who's ready to rock this #BackToSchool season with us?? (You will be after this episode!) (Special thank you to the team at NDSS for sharing their resources and lovely staff members with us! Be on the look out for more collaboration episodes with them coming very soon!) SHOW NOTES Learn more about the National Down Syndrome Society at ndss.org Download the Inclusive Education Guidelines HERE Follow @ndssorg on Instagram! LET'S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! --- Send in a voice message: https://anchor.fm/theluckyfewpod/message Support this podcast: https://anchor.fm/theluckyfewpod/support

Voya and NDSS Financial Wellness Guide - Six Pillars

TonioTimeDaily

Play Episode Listen Later Jun 21, 2022 4:27

I appeared in an advertisement for NDSS. "Many NDSS researchers contributed to the map of chromosome 21, which was the first to be mapped as part of the Human Genome Project due to the relatively low number of genes on the chromosome. NDSS created Changing Lives: Down Syndrome and the Health Care Professional, which aimed to educate physicians, nurses, genetic counselors and other health care professionals on the clinical and developmental needs of people with Down syndrome. NDSS launched Everyone Counts: Teaching Acceptance and Inclusion, a curriculum for grades K-6 that encourages positive relationships between students with and without disabilities. In 2008, NDSS spearheaded the effort to help pass the Prenatally and Postnatally Diagnosed Conditions Awareness Act (Kennedy-Brownback legislation; Public Law 110-374). The law seeks to ensure that pregnant women receiving a positive prenatal test result and parents receiving a postnatal diagnosis will receive up-to-date, scientific information about life expectancy, clinical course, intellectual and functional development, and prenatal and postnatal treatment options. NDSS is carrying out the spirit and intent of this law by helping to facilitate the passage of Down syndrome information bills at the state level. In May 2008, the Congressional Down Syndrome Caucus (CDSC) was formed under the leadership of Congresswoman Cathy McMorris Rodgers (R-WA). The purpose of the CDSC is to educate members of Congress and their staff about Down syndrome. NDSS works the CDSC to support legislative activities that would improve Down syndrome research, education and treatment and promote public policies that would enhance the quality of life for those with Down syndrome. In 2015, the CDSC expanded to a bipartisan, bicameral Congressional Task Force on Down Syndrome. NDSS unveiled its public awareness campaign, My Great Story, which honors and celebrates people with Down syndrome by showcasing stories written by and about them in a unique online storybook. Through a generous grant from the Riggio Family in 2005, NDSS provided three-year grants to two colleges in New Jersey to develop model postsecondary programs for students with intellectual disabilities. Over time, NDSS has provided technical assistance to emerging postsecondary programs across the country. Today there are over 250 two and four-year colleges and universities providing postsecondary education opportunities for students with intellectual disabilities. (See thinkcollege.net for a comprehensive list.)" --- Send in a voice message: https://anchor.fm/antonio-myers4/message Support this podcast: https://anchor.fm/antonio-myers4/support

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EP 539 - His Way

Focus on Metal

Play Episode Listen Later Jun 6, 2022 27:46

EP 539 With Mark Tremonti

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EP 539 - His Way

Focus on Metal

Play Episode Listen Later Jun 6, 2022 27:46

EP 539 With Mark Tremonti

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CAP | Alter Bridge Guitarist Mark Tremonti: Leading His Rat Pack For A Great Cause!

Chris Akin Presents

Play Episode Listen Later Jun 3, 2022

On this episode of CHRIS AKIN PRESENTS…, Chris sits down with Alter Bridge guitarist Mark Tremonti. Tremonti has a surprising new album called MARK TREMONTI SINGS FRANK SINATRA in which he sings Sinatra songs in the style of “Old Blue Eyes” to raise money for charity. Get all our episodes at www.chrisakin.net. Facebook: www.facebook.com/chrisakinpresents Instagram: www.instagram.com/chrisakinpresents Twitter: www.twitter.com/realchrisakin Youtube: https://www.youtube.com/channel/UCol9mEEohs58oVsvtcnCevA […]

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Mark Tremonti - Chats with the Freak

Chats With The Freak By EMSU Media

Play Episode Listen Later May 20, 2022 14:19

Mark Tremonti is a GRAMMY® Award Winning musician, producer and author. A founding member of hard rock bands Creed and Alter- Bridge as well as his solo project, Tremonti, Mark has been named "Guitarist of the Year" for three consecutive years and most recently named “Guitarist of the decade” by Guitar World and the fourth greatest heavy metal guitarist of all time by Total Guitar magazine. Mark Tremonti has come together with surviving members of Frank's orchestra, creating new takes on some of the classics and some deeper cuts from Frank's catalog. Mark has gifted this album to the National Down Syndrome Society (NDSS), using all proceeds to help fund NDSS give the gift of music to children with developmental disabilities.

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160. Organ Transplant Discrimination Against People with Disabilities (ft. incredible advocates!)

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Play Episode Listen Later May 10, 2022 59:09

Gene Buonomo

The Enabled Disabled Podcast

Play Episode Listen Later Apr 24, 2022 49:28

Visit the Enabled Disabled website to share your thoughts and stories: https://www.enableddisabled.com/share Superheroes come in all shapes and sizes. For professional motorcycle rider Gene Buonomo, it's in the form of his 14 year-old son, Decklan. While Gene can impressively guide a 150mph motorcycle on the country's top tracks, his strength doesn't compare to Decklan's, who lives with down syndrome. Life has presented challenges for Decklan from the get-go, as he was born with duodenal atresia, a condition affecting only 1 out of every 7,500 babies. Surviving surgery was one thing, but managing Decklan's down syndrome is a daily challenge for not only Decklan but Gene, who is a single parent to three sons, juggles two jobs and races professionally on the weekends. The National Down Syndrome Society, or NDSS, was Gene and Decklan's saving grace, providing them with resources, programs and a community to connect with others fighting the same fight to give children with down syndrome a normal life, helping them land jobs and providing health information to parents. That is why in his rookie season on the MotoAmerica circuit, Gene will sport the NDSS logo on his leathers, giving thanks, showing support and raising awareness for the society that has saved his family. Decklan will be alongside his dad each weekend of competition, cheering him on as his unofficial racing manager and pit master. --- Send in a voice message: https://anchor.fm/enableddisabled/message Support this podcast: https://anchor.fm/enableddisabled/support

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Diabetes and Drugs - the other D&D

Diacast - a diabetes podcast

Play Episode Listen Later Apr 15, 2022 111:00

No, not the drugs we take to manage our diabetes. The rest of the drugs. You know, NSAIDs, pain meds, opioids, steroids, antidepressants, ADHD meds... and the less-than-legal ones, too. Liz, Amy, DJ, Sanne, and Greg dive into how different medications and drugs affect diabetes and share some personal anecdotes so others can learn from their experiences. Taking drugs of any variety is extra tricky with diabetes, and while many common medications don't significantly impact blood glucose levels, some have unexpected side-effects. The more you know!Contact us:Twitter @diacastEmail contact@diacast.comOther Communities:r/diabetes: https://www.reddit.com/r/diabetes/r/diabetes discord: https://discord.gg/diabetesLinks: Behavioral Diabetes Institute American Diabetes Association Mental Health Provider DirectorySteroidsPrednisone and diabetes Steroids and diabetes fact sheet Steroids and blood sugarSteroid-induced diabetes Pain MedsCommon pain meds influence on diabetesTramadol's link to hyposHigh BG and decreased opioid effectivenessOpioids as DPN treatmentAntidepressantsAntidepressants and T2Antidepressants and improved T2 outcomesDepression treatment and diabetesAnesthesiaAnesthesia and diabetesOther DrugsMost of the drug science mentioned in this episode came from this NDSS booklet - T1 and drugsManaging T1 and “rave” drugs

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Episode 39 World Down Syndrome Day 3.21

Gettin' Down with Down Syndrome

Play Episode Listen Later Mar 20, 2022 24:58

It's World Down Syndrome day! In this episode I talk with Colleen Hatcher the Senior manager of community relations for the National Down Syndrome Society (NDSS) and David DeSanctis the Public outreach associate for NDSS and actor who appeared in the film "Where hope grows." Listen to how they are celebrating this beautiful day. David also gives some wonder advice to new and expecting parents.

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Freestyle Libre 2 Podcast

ADEA Podcast

Play Episode Listen Later Jan 14, 2022 17:20

Host Jan Alford and Karen Crawford discuss the Abbott Freestyle Libre 2. They will review its features and capabilities, the difference between flash glucose monitoring and continuous glucose monitoring and who Is eligible for the Freestyle Libre 2 under the NDSS subsidy. CPD: 0.5 CPD Points in Category 1 To obtain your CPD, please complete the "Feedback and evaluation" and download your "Certificate of completion" at: https://learning.adea.com.au/lms/course/view.php?id=242

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Ep36. Ending 2021

Nursing Australia

Play Episode Listen Later Dec 10, 2021 25:32

In this holiday season episode of Nursing Australia hosted by Matthew St Ledger @mattstledger we hear: The latest Nursing Australia News (2:22) Pfizer booster key to omicron protection; wiping university debts of Drs & NPs and Fake nurse ordered to pay compensation.A Nursing Journey: Daniel's story (3:44) Considering a career in nursing? Curious to explore other options? Hear a nurse's journey from learning to practice across Australia. Australia's biggest nursing event is finally here (12:11) Register for the 2022 APNA Conference Roadshow here: https://www.apna.asn.au/education/roadshow Helping patients access the National Diabetes Services Scheme (NDSS) (16:41) Meet Nurse Dallas Bailey who describes how holistic diabetes management really works. It's crucial that people with diabetes register with the NDSS so they can access information, support services and subsidized products. Health professionals: follow this link to help people with diabetes register with the NDSS. https://www.ndss.com.au/health-professionals/ NDSS Helpline: 1800 637 700 Next time on Nursing Australia (23:43) Register for Australia's biggest nursing event: https://www.apna.asn.au/education/roadshow Subscribe to The Connect (APNA's weekly newsletter): https://www.apna.asn.au/workflows/subscribe Learn more about ABBVIE https://www.abbvie.com.au/ Alzheimer's Disease Podcast7-Part miniseries about Alzheimer's, treatments and lifestyle changes.Listen on: Apple Podcasts Spotify

Episode 55 - LuLaBitch - "Melissa" - Part 2

Life After MLM

Play Episode Listen Later Sep 20, 2021 70:44

*The stories shared in LuLaBitch are our own personal experiences, opinions and allegations of our time in the cult LuLaRoe. Some accounts may be triggering. Please listen at your own discretion. This is meant as a companion series to the Amazon Docuseries, LuLaRich, and is in no way affiliated with the film.* As we finish up our list of LuLaGrievances, "Melissa" and I finally make it to the NDSS scandal, explaining what happened with the top selling consultants who mocked special needs. Listening to how LuLaRoe spun this disaster into their favor is the word salad you didn't know you needed. We also talk about our own actions in LuLaRoe, admitting to things we had deep buried and forgot about, and shed light on the mindset we were in when we made the decisions we did. My chat with "Melissa" was raw, fun, hilarious and authentic, just like her. Show Notes Watch LuLaRich on Amazon Prime Video! - https://amzn.to/3k68Axs Consultants: LuLaRoe's 'Noir' capsule collection is an epic failure - https://www.usatoday.com/story/life/allthemoms/news/2017/11/08/lularoe-noir-all-black-clothing-bad-press/34919179/ People Are Horrified With LuLaRoe For Standing By A Retailer Who Mocked Down Syndrome - https://www.buzzfeednews.com/article/stephaniemcneal/lularoe-ndss NDSS TikTok 1 - https://www.tiktok.com/@bertalikewhoa/video/6975564951985392902 NDSS TikTok 2 - https://www.tiktok.com/@bertalikewhoa/video/6975566407354338566 NDSS TikTok 3 - https://www.tiktok.com/@bertalikewhoa/video/6975567610482216197 NDSS TikTok 4 - https://www.tiktok.com/@bertalikewhoa/video/6975568759889153285 NDSS TikTok 5 - https://www.tiktok.com/@bertalikewhoa/video/6975571555296218373 Dr. Steven Hassans's BITE Model - https://freedomofmind.com/cult-mind-control/bite-model/ Ponzinomics by Robert L. FitzPatrick - https://amzn.to/3q16oJb How can you help? Report false income and health claims here: https://reportfraud.ftc.gov/ Or go to: https://www.truthinadvertising.org You can also report to your state Attorney General's office! https://www.naag.org/find-my-ag/ Not in the U.S.? Go here: https://www.ftc.gov/policy/international/competition-consumer-protection-authorities-worldwide Support the Podcast! Buy me a Taco and leave me a note!

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Supporting the Down Syndrome Community, with Kandi Pickard & Margot Rhondeau of NDSS | EDB 247

Exploring Different Brains

Play Episode Listen Later Aug 26, 2021 30:05

Kandi Pickard & Margot Rhondeau share how the NDSS is helping the Down syndrome community. The National Down Syndrome Society (NDSS) is the leading human rights organization for all individuals with Down syndrome. Kandi Pickard is the President & CEO of the NDSS, where she provides vision and leadership, working collaboratively with individuals and organizations to support the entire Down syndrome community. Margot Rhondeau is the Senior Director of Health & Wellness for the NDSS, where she leads the creation of resources and programming to improve health and wellness within the Down syndrome community. They are also both mothers of children with Down syndrome. For more about the NDSS: https://www.ndss.org/ Follow Different Brains on social media: https://twitter.com/diffbrains https://www.facebook.com/different.brains/ https://www.instagram.com/diffbrains/ Check out more episodes of Exploring Different Brains! http://differentbrains.org/category/edb/

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National Down Syndrome Society

Charity Talks

Play Episode Listen Later Jul 24, 2021 23:57

Kandi Pickard, the President and CEO of the National Down Syndrome Society, is this episode's guest. As the leading human rights organization for individuals with Down Syndrome, NDSS's goal is a world in which all those who live with this syndrome have the opportunity to enhance their quality of life, realize their life aspirations and become valued members of welcoming communities. NDSS accomplishes this through national advocacy, educational programs, an employment program that seeks to increase access to the workplace for those with Down Syndrome, and the National Buddy Walk program which raises awareness for the Down Syndrome Community. Through these programs, NDSS has made a huge impact on so many people's lives. (0:24) Website: https://www.ndss.org/

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Diabetes and Exercise for People in Middle Age (50-70)

ADEA Podcast

Play Episode Listen Later May 24, 2021 13:22

This episode Jan is joined by Accredited Exercise Physiologist and Credentialled Diabetes Educator Elise Hoyer. They will be discussing some important insights into practical exercise and diabetes management recommendations for those people in middle age living with diabetes and other co-morbidities. CPD: Listening to this podcast and completing the feedback and evaluation found on the ADEA Learning Management System will earn you 0.5 CPD Points in Category 1 For more information on Exercise Right Week: https://exerciseright.com.au/exercise-right-week-campaign/ Other Resources and Links Discussed in this episode: Find an AEP in your area: https://www.essa.org.au/find-aep Provide clients with resources from ‘Exercise Right Australia’ https://exerciseright.com.au/ or ‘Exercise is Medicine Australia’ http://exerciseismedicine.com.au/ Provide clients with information to the ‘Beat It’ program. This program is funded through the NDSS to provide clients with diabetes 8 weeks of physical activity and lifestyle support (some providers run sessions face to face or virtually by an AEP) https://diabetesnsw.com.au/about-us/blog/beat-it-exercse-program/ Providing clients who are inactive and over 65 years old information to the ‘Exercise Right for Active Aging’ program. This program is funded through the Australian Government (with a small contribution) to provide clients with 12 weeks of physical activity (some providers run sessions face to face or virtually by an AEP) https://exerciseright.com.au/betterageing/

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NDSS Subsidy for Freestyle Libre

ADEA Podcast

Play Episode Listen Later Apr 22, 2021 10:27

This podcast is designed to get you up to speed with current information regarding the NDSS subsidy for Freestyle Libre. Our host Jan Alford is joined by guest Marlene Payk who will be sharing her expertise and experience on navigating the NDSS subsidy for patients, what the benefits to patients are from accessing this subsidy and practical tips for CDEs to utilise. Marlene Payk is an experienced Nurse Practitioner working in both public and private practice. She has been working as a diabetes educator for over 25years and works with people with all types of diabetes. Marlene has completed a Professional Doctorate of Nurse Practitioner and her research focused on type 1 diabetes and insulin pump therapy. Marlene’s interests include the use of technology to assist with diabetes self-management. Marlene is an active member of the Australian Diabetes Educators Association (ADEA), mentoring new members embarking on obtaining their initial credentialing and she is current secretary of the NSW ADEA Branch and has previously held the position of NSW ADEA Branch chair. We would like to thank Abbott for their sponsorship of this podcast episode. CPD: Listening to this podcast and completing the feedback and evaluation will earn you 0.5 CPD Points in Category 1

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BlackHat USA, Pre-Auth RCEs, and JSON Smuggling

Day[0] - Zero Days for Day Zero

Play Episode Listen Later Mar 2, 2021 69:44

This week we talk a bit about newly released Black Hat 2020 and NDSS 2021 presentation videos, before jumping into several pre-auth RCEs, and some interesting exploitation research to bring a PAC enforced Shadow Stack to ARM and an examination of JSON parser interoperability issues. [00:00:41] Microsoft open sources CodeQL queries used to hunt for Solorigate activity https://www.microsoft.com/security/blog/2021/02/25/microsoft-open-sources-codeql-queries-used-to-hunt-for-solorigate-activity/https://github.com/github/codeql/pull/5083/commits/5e1e27c2b6b3429623b66531d4fe0b090e70638a [00:04:16] Black Hat USA 2020 https://www.youtube.com/playlist?list=PLH15HpR5qRsXE_4kOSy_SXwFkFQre4AV_https://www.youtube.com/c/NDSSSymposium/search?query=NDSS+2021 [00:13:56] Cookie poisoning leads to DOS and Privacy Violation https://hackerone.com/reports/1067809 [00:16:37] Unauthorized RCE in VMware vCenter https://swarm.ptsecurity.com/unauth-rce-vmware/ [00:20:01] A Fifteen-Year-Old RCE Bug Returns in ISC BIND Server [CVE-2020-8625] https://www.thezdi.com/blog/2021/2/24/cve-2020-8625-a-fifteen-year-old-rce-bug-returns-in-isc-bind-server [00:25:42] Arbitrary File Write on packagecontrol.io (Sublime Text) https://bugs.chromium.org/p/project-zero/issues/detail?id=2163 [00:30:31] [Uber] PreAuth RCE on Palo Alto GlobalProtect https://hackerone.com/reports/540242http://blog.orange.tw/2019/07/attacking-ssl-vpn-part-1-preauth-rce-on-palo-alto.html [00:35:26] The little bug that couldn't: Securing OpenSSL https://github.blog/2021-02-25-the-little-bug-that-couldnt-securing-openssl/ [00:41:49] PACStack: an Authenticated Call Stack https://www.usenix.org/conference/usenixsecurity21/presentation/liljestrand [00:56:29] An Exploration of JSON Interoperability Vulnerabilities https://labs.bishopfox.com/tech-blog/an-exploration-of-json-interoperability-vulnerabilities [01:03:59] Top 10 web hacking techniques of 2020 https://portswigger.net/research/top-10-web-hacking-techniques-of-2020 [01:05:50] OST 2.0 Beta Spots Open https://twitter.com/XenoKovah/status/1366224804639031299 Watch the DAY[0] podcast live on Twitch (@dayzerosec) every Monday afternoon at 12:00pm PST (3:00pm EST) Or the video archive on Youtube (@dayzerosec)

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Seniors over 80 to be vaccinated in B.C. by the end of March

Daily News Update from CHLY 101.7FM

Play Episode Listen Later Feb 20, 2021 3:00

Friday COVID-19 updateThere are 22 new cases of COVID-19 in the Island Health region. Province-wide, there has been another large increase with 508 new cases and six more deaths.Vaccination will lead to increased access to family in long-term careBC's Minister of Health says despite vaccine delays, the province will immunize all citizens over the age of 80 by the end of March. Adrian Dix says starting March the 1st, British Columbians over the age of 80 who receive home care will begin receiving vaccine, and others in that age group who are not connected to health care programs will start receiving vaccine on March 15th. Dix says almost all seniors in long term and assisted living will receive their second dose of vaccine this month. He says that means it won't be long before visiting restrictions now in place will be lifted."What we hope is going to change soon in long-term care, what we hope is going to change soon in assisted living, we believe in the month of March where people are going to have more access, not less and more opportunities to engage and not less."—Minister of Health Adrian Dix.Dix notes COVID-19 outbreaks in care homes have declined from 59 in December to 14 today is a result of immunity that residents have with the first dose of vaccine.Replacement of NDSS highlighted in school district planNanaimo District Secondary School is at the end of its useful life and desperately needs to be replaced. That's one recommendation in Nanaimo-Ladysmith Public School's latest long-range facility plan. The report says the school needs significant maintenance, is a high priority for seismic upgrades and is environmentally unfriendly. The school district's secretary-treasurer, Mark Walsh, identifying NDSS in the plan is meant to send a message.“It's our number one seismic priority, it's end of life, school districts around the province are getting replacement schools right now, and NDSS, this again is a message to our community, to the ministry, to political partners, that this needs to happen.“—Mark Walsh SD-68 Secretary-Treasurer.The plan also projects other schools could be seriously overcrowded in the next 10 years. Dover Bay Secondary and Pleasant Valley Elementary are already feeling the strain and are predicted to reach more than 180 per cent capacity by 2030. Walsh is recommending developers pay a School Site Acquisition Charge to help fund expansion."We are certain, at least in Nanaimo and Lantzville, that the school site acquisition charge is an absolute slam dunk. There's hundreds of thousands of dollars waiting for the district to go collect from development."—Mark Walsh SD-68 Secretary-Treasurer.The next step is for the board to discuss the plan with the community.

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TALK Story 18 of 21 Inspirational Stories of Down Syndrome: Loomed with Love, Victoria and Kristen

TALK Down Syndrome

Play Episode Listen Later Oct 28, 2020 31:08

October is down syndrome awareness month and this month we’re sharing 21 inspirational stories straight from our listeners. This is story # 18. Today I speak with entrepreneurs, Victoria and Kristen (who is also Victoria's sister) about their business, Loomed with Love. Loomed with Love is a company that sells handcrafted accessories all created by Victoria. Their aim to spread awareness and support to unique communities such as Down Syndrome and Breast Cancer Awareness. And a portion of their proceeds go towards the NDSS

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Cast Your Vote: National Down Syndrome Society

Empire State of Rights: Closed Captioned

Play Episode Listen Later Oct 21, 2020 7:34

**This podcast was recorded using Zoom** | September 17, 2020Charlotte Woodward, Community Outreach Associate for the National Down Syndrome Society (NDSS), discusses the importance of voting and its relationship to NDSS’ mission and advocacy work. Election Day is Tuesday, November 3rd. **Resources**www.ndss.orgSupport the show (https://donate.democracyengine.com/DRNY/contribute)

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20 | Support Between Cultural Practices in Pregnancy and Diabetes Care

MamaBetes

Play Episode Listen Later Aug 26, 2020 53:46

This week on Mamabetes, Carleigh and Rachel are joined by two guests: Kim Minniecon, Senior Indigenous Health Coordinator at Queensland Health; and Maira Kamal, a practicing Muslim who is planning a pregnancy. These women discuss what it is like living with and managing a diabetes diagnosis during pregnancy, as well as the cultural and religious practices that may impact on this management.You can contact your local diabetes state organisation or NDSS for support in caring for and managing your diabetes in relation to cultural and religious practices. For more information about managing diabetes health as a First Nations person, visit the Diabetes Australia website at: https://www.diabetesaustralia.com.au/aboriginal-and-torres-strait-islandersFor further support on pregnancy loss, please touch base with your healthcare professional, PANDA's perinatal national helpline on 1300 726 306, SANDS on 1300 072 637 or any other organisation you feel comfortable and safe to reach out to.Make sure you subscribe to us wherever you listen to your podcast so you never miss an episode, and leave us a review so that others can find us too. Please jump over and find us on Facebook, Instagram & Twitter. The MamaBetes team love connecting with you on these platforms! To reach out, please email us at mamabetes.podcast@gmail.com.If during this podcast series you feel you need to reach out for additional support, please contact your usual treating team, PANDA's National Perinatal Anxiety & Depression Helpline on 1300 726 306 or LifeLine on 13 11 14 outside of PANDAs operating hours.

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14 | Conversations with your Healthcare Professionals During Pregnancy

MamaBetes

Play Episode Listen Later Jul 16, 2020 49:37

This week on Mamabetes we are joined by special guest Amanda Callaghan, registered nurse, registered midwife and credentialed diabetes educator at Diabetes Queensland. Amanda talked with us about the many healthcare professionals who form part of our team during pregnancy and when we might encounter them. We discussed how to get the most out of conversations with these varying team members as they help care for us and our babies.For non-urgent 24 hour access to midwife support, the Pregnancy, Birth and Baby helpline supports parents on the journey from pregnancy, to baby and pre-school. They can be contacted on 1800 882 436. You can also contact your local diabetes state organisation or NDSS for support in talking to your healthcare professionals. Read more on the Diabetes Australia website at: https://www.diabetesaustralia.com.au/health-care-teamPlease jump over and find us on Facebook, Instagram & Twitter. The MamaBetes team love connecting with you on these platforms!

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Episode 37 - Literally writing the book & navigating the course of a dual diagnosis of Down Syndrome and Autism

Living the Sky Life - Autism Journey

Play Episode Listen Later Jul 1, 2020 54:47

Teresa Unnerstall is a writer, advocate, speaker, and consultant specializing in the dual diagnosis of Down syndrome and autism (DS-ASD). She is the author of “A New Course: A Mother’s Journey Navigating Down Syndrome and Autism.” Teresa has contributed articles to The Mighty along with several Down syndrome support groups across the country. In addition, she has been writing a weekly blog about her son Nick, who has DS-ASD (Down Syndrome with a Slice of Autism at www.nickspecialneeds.com) since 2012. Teresa has been a presenter for NDSS and a guest lecturer and advocate at Northern Illinois University and Aurora University. She holds a bachelors degree in kinesiology and health education from the University of Texas and has been working in the fitness field for more than thirty-five years. Teresa and her husband, Al, have two sons, Hank and Nick. She lives in the Chicago area. Stay connected to Teresa and order her newly released book! https://www.teresaunnerstall.com FB & IG @ Down Syndrome with a Slice of Autism Twitter @tjunnerstall Blog https://www.nickspecialneeds.com ***************************************** To purchase my book “Welcome to My Life – A Personal Parenting Journey Through Autism” click HERE!! You can easily stay connected to the Living the Sky Life podcast and me in various ways: linktr.ee/skykenmom I'd love to hear what you think, so if listening on the Apple platform, please leave a written review and rating of the podcast! If you are interested in being a guest on an episode of Living the Sky Life, please contact me!

Season 2, Episode 15, Part 4: Interview with Kayla McKeon & Rachel Burns, "Kayla's Employment Journey"

Play Episode Listen Later Jun 4, 2020 16:40 Transcription Available

This is the last of a four part interview with Kayla McKeon and Rachel Burns. Kayla McKeon is famous for being the first registered lobbyist with Down syndrome. She is also a podcast host, keynote speaker, and college student. She and Rachel Burns have been best friends for approximately 18 years. Rachel does not have a disability. In this episode they will talk about Kayla's extraordinary and unique employment journey.

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Season 2, Episode 14, Part 3: Interview with Kayla McKeon & Rachel Burns, "Advice, Mottos, & Goals"

Play Episode Listen Later May 28, 2020 17:38

This is the third of a four part interview with Kayla McKeon and Rachel Burns. Kayla McKeon is famous for being the first registered lobbyist with Down syndrome. She is also a podcast host, keynote speaker, and college student. She and Rachel Burns have been best friends for approximately 18 years. Rachel does not have a disability. In this episode they will share their advice, mottos, and goals with candor and love.

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Season 2, Episode 13, Part 2: Interview with Kayla McKeon & Rachel Burns, "Big Moments and More"

Play Episode Listen Later May 21, 2020 12:49 Transcription Available

This is the second of a four part interview with Kayla McKeon and Rachel Burns. Kayla McKeon is famous for being the first registered lobbyist with Down syndrome. She is also a podcast host, keynote speaker, and college student. She and Rachel Burns have been best friends for approximately 18 years. Rachel does not have a disability. In this episode they will talk about some big moments in their lives. Their friendship will warm your heart.

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Season 2, Episode 12, Part 1: Interview with Kayla McKeon & Rachel Burns. "A Friendship Without Walls"

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Play Episode Listen Later May 14, 2020 20:37 Transcription Available

This is the first of a four part interview with Kayla McKeon and Rachel Burns. Kayla McKeon is famous for being the first registered lobbyist with Down syndrome. She is also a podcast host, keynote speaker, and college student. She and Rachel Burns have been best friends for approximately 18 years. Rachel does not have a disability. Get to know them both in this episode. Their friendship will warm your heart.

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Dad to Dad 92 Montage Of SFN Mentor Fathers Reflecting On Raising Children With Down Syndrome Dads

Dad to Dad Podcast

Play Episode Listen Later Apr 3, 2020 9:05

This is the Special Fathers Network Dad to Dad podcast. Of the close to 100 Dads we've interviewed thus far, many are the proud parents of kids with Down Syndrome. So today we're going to hear clips from these Dads. We'll hear how they reacted to the news that they're child has Down Syndrome, and we'll hear how these children have been a real blessing. That's all on this Dad to Dad Podcast, presented by The Special Fathers Network. You'll hear highlights from David Hirsch's conversations, listed here in the order in which they appear: Kelly Moynihan (Dad to Dad #63), Joe Ciriano (#23), Skip Gianopulos (#3), John Wagner (#62), Rob Wrubel (#91) , Josh Avis (#82), Mark Cronin (#17), Paul Gianni (#6), Tom Delaney (#44), Stacy Tetschner (#41) , Sean Farrell (#59) and Rick Daynes (#45).Show Links:To find out more about Gigi's Playhouse go to: https://gigisplayhouse.orgFind out more about Rob Wrubel and his books at https://robwrubel.comPurchase Heather Avis' book The Lucky Few: Finding God's Best in the Most Unlikely Places at Amazon:https://www.amazon.com/Lucky-Few-Finding-Unlikely-Places/dp/0310345464/ref=sr_Find out more about John Crowley's mission at www.Amicusrx.comHere's the purchase link fo Rick Daynes' book Keep it Together Man, for Dads with a Special Kid https://www.amazon.com/Keep-Together-Man-Dads-Special-ebook/dp/B01KBITXAI/ref=sr_1_1?dchild=1&keywords=keep+it+together+man+for+dads+with+a+special+kid&qid=1585933578&sr=8-1And lastly, to ready more about the Special Fathers Network go to https://21stcenturydads.org/about-the-special-fathers-network/

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In Our Community Podcast Episode #26 - Amanda Young, Athletic Ambassador, NDSS -

In Our Community Podcast

Play Episode Listen Later Mar 16, 2020 32:16

In this episode, Coach Hidi sat down with Amanda Young, the Athletic Ambassador for the National Down Syndrome Society. Amanda talks passionately about her son, Elliott, and how NDSS has played an important role in their lives. Find out more about the NDSS and their journey on this episode. Make sure to subscribe to our show and give us a 5 star rating on iTunes!

Clearview AI Privacy Fails - ThreatWire

Threat Wire

Play Episode Listen Later Mar 3, 2020 12:18

Billions of Wi-Fi Devices Flawed, Secretly Controlling Voice Assistants, and Clearview AI is basically a privacy dumpster fire! All that coming up now on ThreatWire. #threatwire #hak5 Links:Support me on alternative platforms! https://snubsie.com/support Shop ThreatWire Merch! - https://snubsie.com/shop USE CODE “MOVING2020” for 25% OFF ANYTHING IN THE STORE! GOOD TIL 3/4/2020 https://www.youtube.com/shannonmorse -- subscribe to my new channel! ThreatWire is only possible because of our Patreon patrons! https://www.patreon.com/threatwire Links:https://www.welivesecurity.com/2020/02/26/krook-serious-vulnerability-affected-encryption-billion-wifi-devices/https://vulmon.com/vulnerabilitydetails?qid=CVE-2019-15126https://thehackernews.com/2020/02/kr00k-wifi-encryption-flaw.htmlhttps://the-parallax.com/2020/02/27/kr00k-wi-fi-billion-devices-iphone-echo-kindle/https://www.cyberscoop.com/wifi-vulnerability-eset/https://threatpost.com/billions-of-devices-wifi-encryption-hack/153267/https://arstechnica.com/information-technology/2020/02/flaw-in-billions-of-wi-fi-devices-left-communications-open-to-eavesdroppng/ https://thehackernews.com/2020/03/voice-assistants-ultrasonic-waves.htmlhttps://www.vice.com/en_us/article/bvg5dv/ultrasonic-waves-can-make-siri-share-your-secretshttps://surfingattack.github.io/papers/NDSS-surfingattack.pdfhttps://source.wustl.edu/2020/02/surfing-attack-hacks-siri-google-with-ultrasonic-waves/ https://clearview.ai/https://www.nytimes.com/2020/01/18/technology/clearview-privacy-facial-recognition.htmlhttps://www.cnet.com/news/clearview-ai-facial-recognition-customers-reportedly-include-ice-justice-department-fbi-macys/https://www.cnet.com/news/apple-blocks-clearview-ai-facial-recognition-on-iphones-after-developer-violation/https://www.zdnet.com/article/data-breach-exposes-clearview-ai-client-list/https://www.vice.com/en_us/article/bvgyqa/clearview-ai-customer-list-data-breach-hackedhttps://gizmodo.com/we-found-clearview-ais-shady-face-recognition-app-1841961772?rev=1582861547126https://www.vice.com/en_us/article/5dmkyq/heres-the-file-clearview-ai-has-been-keeping-on-me-and-probably-on-you-too Photo credit:https://upload.wikimedia.org/wikipedia/commons/2/2c/Face_Recognition_3252983.png -----☆-----☆-----☆-----☆-----☆-----☆-----☆-----☆-----☆-----☆Our Site → https://www.hak5.orgShop → https://www.hakshop.comSubscribe → https://www.youtube.com/user/Hak5Darren?sub_confirmation=1Support → https://www.patreon.com/threatwireContact Us → http://www.twitter.com/hak5Threat Wire RSS → https://shannonmorse.podbean.com/feed/Threat Wire iTunes → https://itunes.apple.com/us/podcast/threat-wire/id1197048999 Host: Shannon Morse → https://www.twitter.com/snubsHost: Darren Kitchen → https://www.twitter.com/hak5darrenHost: Mubix → http://www.twitter.com/mubix-----☆-----☆-----☆-----☆-----☆-----☆-----☆-----☆-----☆-----☆

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Syed Rafiul Hussain, Automated Reasoning of Security and Privacy of Cellular Networks

Play Episode Listen Later Feb 5, 2020 54:10

Cellular technologies enable a wide array of critical services, from personal communication, autonomous vehicles and telemedicine to critical infrastructures, such as smart grid electricity distribution. Unfortunately, security and user privacy for such complex networks are often considered as afterthoughts. These lead to inadequate security evaluation early on the development cycle that fails to identify missing security and privacy guarantees in protocol designs. To make matters worse, unsafe practices and operational oversights stemming from poor input sanitization and unvetted simplification of complex protocol interactions further contribute to the deviation of deployments from designs. In this talk, I will highlight how my research addresses these problems by developing principled techniques for analyzing design specifications and deployments of complex cellular network protocols. I will first present a new adversarial reasoning technique combining the capabilities of a symbolic model checker and a cryptographic protocol verifier that enabled us to identify 20+ new vulnerabilities in 4G and 5G cellular network design specifications. I will then discuss three new side-channel attacks in 4G and 5G networks uncovered with our dedicated probabilistic reasoning technique. Next, I will talk about a fuzzing technique which is more effective than the state-of-the-art in reasoning about syntactic and semantic correctness of an implementation when binary instrumentation is not realizable and direct feedback on code coverage information is missing. Finally, I will conclude with a discussion on challenges in adapting and scaling our current approaches for a holistic analysis of 5G and next-generation cellular networks, and IoT systems. About the speaker: Syed Rafiul Hussain is a Postdoctoral Researcher in the Department of Computer Science at Purdue University from where he also received his Ph.D. in December 2018. His research interests broadly lie in network and system security with a focus on the fundamental improvement of security and privacy analysis of emerging networks and cyber-physical systems, including cellular networks and Internet-of-Things. His papers have received awards and nominations, including ACSAC'19 distinguished paper award, NDSS'19 distinguished paper award honorable mention, and ACM SIGBED EWSN'17 best paper award nomination. He has been inducted twice in the Hall of Fame Mobile Security Research by GSMA for his contribution in identifying 20+ new protocol flaws in 4G and 5G cellular networks. His findings led to several changes in the 4G and 5G cellular protocol designs and in operational networks. His work has been featured by mass media outlets worldwide, including the New York Times, Washington Post, Forbes, MIT Technology Review, and The Register.

44. Shifting the Diagnosis Narrative w/Carissa Carroll from Jack's Basket

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Play Episode Listen Later Oct 7, 2019 30:51

Last month, we went to DSDN's Rockin' Mom Retreat in Nashville, Tennessee and partied with over 700 moms who have kiddos with Down Syndrome. And we even sat down to interview a few.. including Carissa Carroll, the founder and president of Jack's Basket! This mother of three children (one of whom rocks an extra chromosome!) learned the hard way that a Down Syndrome diagnosis is not often met with a “Congratulations!” And so, she took matters into her own hands and created Jack's Basket, a nonprofit organization that hand delivers complimentary gift baskets to families with a new DS diagnosis. Not only has Carissa changed the diagnosis experience for over 1,700 families in 11 different countries, she has developed educational resources for the medical professionals delivering the diagnosis. We cannot wait to tell you more about Carissa and her extraordinary efforts to shout the worth of babies with Down Syndrome. Join us throughout October as we celebrate Down Syndrome Awareness month with more interviews from amazing advocates in this community. __ Visit jacksbasket.org for more information on this incredible organization! Follow Jack's Basket on Instagram and Facebook! UPCOMING: Stay tuned for a super special live event announcement from us! All you need to know right now is that you'll want to be there, (oh and it's happening in November!) Find a Buddy Walk near you to celebrate Down Syndrome Awareness Month in October! SHOW SPONSOR: BEHNO Guided by ethical principles and sustainability, Behno is a NYC fashion brand that creates beautiful and quality products, including the ‘Nini' tote to support NDSS! Purchase a tote (or two) and use code: NDSS at checkout to receive a complimentary Tara cardholder, valued at $75. SHOW SPONSOR: QRI (Quantum Reflex Integration) QRI empowers individuals to reach their potential by strengthening neurological connections through cold laser and reflex integration! Head to reflexintegration.net and use code: QRILuckyFew for a FREE QRI Computer Harmonizer valued at $159 with the purchase of an Essentials Package. LET'S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! CHECK OUT HEATHER'S NEW BOOK Scoot Over and Make Some Room: Creating a Space Where Everyone Belongs by Heather Avis is NOW available on Amazon. Head to Youtube and subscribe to The Lucky Few's NEW Channel: In Search of The Lucky Few. Click here to start watching now! --- Send in a voice message: https://anchor.fm/theluckyfewpod/message Support this podcast: https://anchor.fm/theluckyfewpod/support

43. Back to School & All Things Best Buddies w/Val Schlieder & Allison Covell

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Play Episode Listen Later Sep 30, 2019 55:27

We're all hoping for great friends for our kiddos, right? And as parents of kids with Down Syndrome, we might be hoping for those great friends even more than most. That's why we are so excited to talk to you all about Best Buddies, an international non-profit organization that focuses on creating meaningful, one on one, friendships between students with and without different abilities. Here today to tell us all about the program and share their amazing friendship story is (our co-producer) Val Schlieder & her sister, Allison Covell. Starting out as high schoolers in the program and then eventually going on to co-launch their own college group, both ladies have been involved with Best Buddies for nearly 10 years! This set of sisters credits Best Buddies for introducing them to the Down Syndrome community and their best friend/sister, Linzey! Because of what they learned about inclusive friendships, they're now strong advocates in the differently-abled world, both online and off! You can follow @linzeyslight on Instagram for all things dancing, adults with Down Syndrome, friendship, & more! So friends, join us as we answer your questions about all things inclusive friendship and Best Buddies! How can parents of kids without different abilities encourage their children to have inclusive friendships? How can we make sure students value friendships with their peers who have different abilities? And, how can you join or start a Best Buddies program at your school? __ SHOW LINKS Find out more about Best Buddies and how to join (or start) a program near you! Keep up with today's guests on Instagram: @linzeyslight Watch Val's “In Search Of The Lucky Few” video here. Curious about the AAC (augmented alternative communication) device Micha mentioned? Check it out here! SHOW SPONSOR: BEHNO Guided by ethical principles and sustainability, Behno is a NYC fashion brand that creates beautiful and quality products, including the ‘Nini' tote to support NDSS! Purchase a tote (or two) and use code: NDSS at checkout to receive a complimentary Tara cardholder, valued at $75. SHOW SPONSOR: QRI (Quantum Reflex Integration) QRI empowers individuals to reach their potential by strengthening neurological connections through cold laser and reflex integration! Head to reflexintegration.net and use code: QRILuckyFew for a FREE QRI Computer Harmonizer valued at $159 with the purchase of an Essentials Package. LET'S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! --- Send in a voice message: https://anchor.fm/theluckyfewpod/message Support this podcast: https://anchor.fm/theluckyfewpod/support

42. More Than A Handbag: An Interview w/Shivam Punjya

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Play Episode Listen Later Sep 23, 2019 43:01

The National Down Syndrome Society (NDSS) gave his family hope when his sister was born, and now he's giving it right back. Friends, meet Shivam Punjya, the founder of Behno and the brother of Nini, his younger sister with Down Syndrome. Although his beautiful NYC brand of ethically designed handbags started out with goals to increase sustainability and support workers in India, Shivam's most recent outreach efforts include a cause that's pretty close to our own hearts.. The Nini Collection! That's right, he made fashionable, quality handbags accessible to his sister, Nini, and anyone else who might benefit from a rounded zipper and bigger storage space! We love functional fashion, but we love Behno's collaboration with NDSS even more! That's because 20% of every purchase of a ‘Nini' tote goes straight to NDSS. Check out this extraordinary partnership and join us for an interview with it's creator, Shivam! We're chatting about all things related to having a sibling with Down Syndrome: perspective shifts, family dynamics, sibling rivalries, and more! __ SHOW LINKS Support Behno and NDSS by purchasing the ‘Nini' tote! 20% of sales go straight to NDSS. Shop here. UPCOMING: Stay tuned for a super special live event announcement from us! All you need to know right now is that you'll want to be there, (oh and it's happening in November!) Find a Buddy Walk near you to celebrate Down Syndrome Awareness Month in October! SHOW SPONSOR: BEHNO Guided by ethical principles and sustainability, Behno is a NYC fashion brand that creates beautiful and quality products, including the ‘Nini' tote to support NDSS! Purchase a tote (or two) and use code: NDSS at checkout to receive a complimentary Tara cardholder, valued at $75. SHOW SPONSOR: QRI (Quantum Reflex Integration) QRI helps individuals reach their potential by strengthening neurological connections through cold laser and reflex integration! Head to reflexintegration.net and use code: QRILuckyFew for a FREE QRI Computer Harmonizer valued at $159 with the purchase of an Essentials Package. LET'S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! CHECK OUT HEATHER'S NEW BOOK Scoot Over and Make Some Room: Creating a Space Where Everyone Belongs by Heather Avis is NOW available on Amazon. Head to Youtube and subscribe to The Lucky Few's NEW Channel: In Search of The Lucky Few. Click here to start watching now! --- Send in a voice message: https://anchor.fm/theluckyfewpod/message Support this podcast: https://anchor.fm/theluckyfewpod/support

How the NDSS can help you

One in Four: Living with Diabetes

Play Episode Listen Later Mar 18, 2019 14:03

What is the NDSS? Why should you register and what programs and services are available to you? Credentialled Diabetes Educator, Angela Blair, talks to Mark Bennett, NDSS Helpline Team Leader about the support services the NDSS provides. Whether you are managing pre diabetes, type 1, type 2 or gestational diabetes this episode gives you the low down what the NDSS can offer you.

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National Diabetes Services Scheme (NDSS) support services

Let's talk diabetes

Play Episode Listen Later Feb 24, 2019 15:25

Angela Blair, Credentialed Diabetes Educator at Diabetes NSW & ACT talks to Mark Bennet, NDSS helpline team leader about the support services that the NDSS provides.

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The Groundbreaking Lobbyist with Down Syndrome, featuring Kayla McKeon | EDB 159

Exploring Different Brains

Play Episode Listen Later Feb 20, 2019 15:42

In this episode, Dr. Hackie Reitman speaks with Kayla McKeon, the first lobbyist in Washington, DC with Down syndrome. (16 minutes) Kayla is the Manager of Grassroots Advocacy for the National Down Syndrome Society, a human rights organization for all individuals with Down syndrome. Join Hackie and Kayla as they talk about Kayla's life growing up, her experiences as a Washington lobbyist, and what she feels the public doesn't understand about people with Down syndrome. For more information about the NDSS visit: http://NDSS.org/ And for Kayla’s blog, visit: http://kaylamckeon.com/ Follow Different Brains on social media: https://twitter.com/diffbrains https://www.facebook.com/different.brains/ https://www.instagram.com/diffbrains/ Check out more episodes of Exploring Different Brains! http://differentbrains.org/category/edb/

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Shiqing Ma, Kernel-Supported Cost-Effective Audit Logging for Causality Tracking

Play Episode Listen Later Sep 26, 2018 39:17

The Linux Audit system is widely used as a causality tracking system in real-world deployments for problem diagnosis and forensic analysis. However, it has poor performance. We perform a comprehensive analysis on the Linux Audit system and find that it suffers from high runtime and storage overheads due to the large volume of redundant events. To address these shortcomings, we propose an in-kernel cache-based online log-reduction system to enable high-performance audit logging. It features a multi-layer caching scheme distributed in various kernel data structures, and uses the caches to detect and suppress redundant events. Our technique is designed to reduce the runtime overhead caused by transferring, processing, and writing logs, as well as the space overhead caused by storing them on disk. Compared to existing log reduction techniques that first generate the huge raw logs before reduction, our technique avoids generating redundant events at the first place. Our experimental results of the prototype KCAL (Kernel-supported Cost-effective Audit Logging) on one-month real-world workloads show that KCAL can reduce the runtime overhead from 40+% to 15-%, and reduce space consumption by 90% on average. KCAL achieves such a large reduction with 4% CPU consumption on average, whereas a state-of-the-art user space log-reduction technique has to occupy a processor with 95+% CPU consumption all the time. About the speaker: Shiqing Ma is a Ph.D. candidate from the Department of Computer Science at Purdue University, advised by Dr. Xiangyu Zhang and Dr. Dongyan Xu. He received his B.E. from School of Software Engineering, Shanghai Jiao Tong University (SJTU) in 2013. His research focuses on system/software security, software engineering and machine learning. He is a recipient of the Bilsland Dissertation Fellowship and two Distinguished Paper Awards from NDSS 2016 and USENIX Security 2017.

Adil Ahmad, OBLIVIATE: A Data Oblivious File System for Intel SGX

Play Episode Listen Later Feb 14, 2018 58:07

Trusted computing is the key component in achieving confidentiality and integrity in modern cloud environments. Commodity trusted hardware such as Intel SGX and ARM Trustzone allow programs to execute and store sensitive data in secure memory regions. It is envisioned that these systems will enable important applications from trusted data analytics and Private Information Retrieval (PIR) in the cloud to content protection and secure financial services in mobile settings.This talk deals with the security aspects of SGX programs in accessing a key system resource, files. Our focus would be on concrete attacks against existing SGX filesystem implementations through well-known side-channels, as well as the design and implementation of an oblivious filesystem to thwart aforementioned attacks. Our solution, Obliviate, mitigates this threat using ORAM, a cryptographic primitive which enables secure data access even when the attacker can observe all memory interactions. We show that a naive implementation of ORAM within SGX opens vulnerability to other attacks and induces a degree of overhead. Therefore, Obliviate develops a secure implementation of ORAM using CMOV, an x86-based instruction, and employs other SGX-specific optimizations. We show that Obliviate can secure all filesystem interactions while providing a performance improvement of 6 − 8× over a baseline scheme. Potential use-cases of Obliviate include real-world cloud applications such as web servers, databases and personal cloud storage. This work will appear in NDSS 2018. About the speaker: Adil Ahmad is a PhD student with the Department of Computer Science at Purdue University, being advised by Prof. Byoungyoung Lee. His primary research interests are in the field of systems and security with a particular focus on hardware-assisted trusted computing.

Adil Ahmad, "OBLIVIATE: A Data Oblivious File System for Intel SGX"

Play Episode Listen Later Feb 14, 2018

Trusted computing is the key component in achieving confidentiality and integrity in modern cloud environments. Commodity trusted hardware such as Intel SGX and ARM Trustzone allow programs to execute and store sensitive data in secure memory regions. It is envisioned that these systems will enable important applications from trusted data analytics and Private Information Retrieval (PIR) in the cloud to content protection and secure financial services in mobile settings. This talk deals with the security aspects of SGX programs in accessing a key system resource, files. Our focus would be on concrete attacks against existing SGX filesystem implementations through well-known side-channels, as well as the design and implementation of an oblivious filesystem to thwart aforementioned attacks. Our solution, Obliviate, mitigates this threat using ORAM, a cryptographic primitive which enables secure data access even when the attacker can observe all memory interactions. We show that a naive implementation of ORAM within SGX opens vulnerability to other attacks and induces a degree of overhead. Therefore, Obliviate develops a secure implementation of ORAM using CMOV, an x86-based instruction, and employs other SGX-specific optimizations. We show that Obliviate can secure all filesystem interactions while providing a performance improvement of 6 − 8× over a baseline scheme. Potential use-cases of Obliviate include real-world cloud applications such as web servers, databases and personal cloud storage. This work will appear in NDSS 2018.

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Shiqing Ma, MPI: Multiple Perspective Attack Investigation with Semantic Aware Execution Partitioning

Exploring Different Brains

Play Episode Listen Later Aug 23, 2017 49:14

Operating system level auditing is one of the most important forensics techniques. With operating system level audit systems, e.g., the Linux audit system, investigators can generate attack causal graphs by analyzing the causal relationships between the logged events. However, traditional techniques usually generate large and inaccrute causal graphs. This is because applications are not aware of the existence of the OS level audit systems, and can not provide its own context information. To solve this problem, we propose MPI (short for Multiple Perspective attack Investigation), a semantics aware program annotation and instrumentation technique to partition process executions based on the application specific high level task structures. It converts current applications to be provenance-aware, generates execution partitions with rich semantic information and provides multiple perspectives of an attack. We develop a prototype and integrate it with three different provenance systems: the Linux Audit system, ProTracer and the LPM-HiFi system. The evaluation results show that our technique generates simple and accurate attack graphs with rich high-level semantics and has much lower space and time overheads. About the speaker: Shiqing Ma is a Ph.D. student from the Department of Computer Science at Purdue University, advised by Dr. Xiangyu Zhang and Dr. Dongyan Xu. His research focuses on system and software security especially data provenance problems. His past works include building low-overhead, cost-effective operating system level provenance systems, and automatically translating normal programs into provenance-aware programs to help assist accurate provenance analysis. He is a recipient of two Distinguished Paper Awards from NDSS 2016 and USENIX Security 2017.

Эпизод 82 - Oleksii and Conferences (11.5.2017)

Securit13 Podcast

Play Episode Listen Later Jul 19, 2017 51:26

Intro / Outro I Do Believe I've Had Enough by Zephaniah And The 18 Wheelers http://freemusicarchive.org/music/Zephaniah_And_The_18_Wheelers/Live_On_WFMUs_Honky_Tonk_Radio_Girl_Program_with_Becky_11316/Zephaniah_And_The_18_Wheelers_02_I_Do_Believe_Ive_Had_Enough Big 4 of the top security and privacy conferences: S&P ("Oakland"), NDSS, CCS and USENIX Security. Наука не делается самостоятельно, a нужно учиться у передовых исследований, как они интегрируются с практикой, понимать их уровень, и себя показывать. По-этому, для того кто первый с украинским affiliation опубликует статью на этих конференциях - с меня можно пообещать "коньяк" :) The Network and Distributed System Security Symposium (NDSS) 2017 by Internet Society - http://www.internetsociety.org/events/ndss-symposium/ndss-symposium-2017 > From the keynote speech by J. Alex Halderman: "Want to Know if the Election was Hacked? Look at the Ballots" - https://medium.com/@jhalderm/want-to-know-if-the-election-was-hacked-look-at-the-ballots-c61a6113b0ba "Securing Digital Democracy" course - https://www.coursera.org/learn/digital-democracy Video - https://www.youtube.com/watch?v=Snoo6CXiyWU&feature=youtu.be > Web Security section: "(Cross-)Browser Fingerprinting via OS and Hardware Level Features" by Yinzhi Cao et al. - https://www.internetsociety.org/doc/cross-browser-fingerprinting-os-and-hardware-level-features Websites to test your browser and device fingerprint: https://panopticlick.eff.org https://amiunique.org http://uniquemachine.org (now, cross-browser!) "Fake Co-visitation Injection Attacks to Recommender Systems" by Guolei Yang et al. - https://www.internetsociety.org/doc/fake-co-visitation-injection-attacks-recommender-systems > User Authentication section: "Cracking Android Pattern Lock in Five Attempts" by Guixin Ye at el. - https://www.internetsociety.org/doc/cracking-android-pattern-lock-five-attempts "Towards Implicit Visual Memory-Based Authentication" by - https://www.internetsociety.org/doc/towards-implicit-visual-memory-based-authentication > TLS et al. (several papers on Diffie-Hellman and more) "The Security Impact of HTTPS Interception" by Zakir Durumeric et al. - https://www.internetsociety.org/doc/security-impact-https-interception "WireGuard: Next Generation Kernel Network Tunnel" by Claude Castelluccia et al. - https://www.internetsociety.org/doc/wireguard-next-generation-kernel-network-tunnel (by a single author, Jason Donenfeld!) More on WireGuard: https://fosdem.org/2017/schedule/event/wireguard/ https://www.phoronix.com/scan.php?page=news_item&px=WireGuard-2016 https://www.wireguard.io > On Tor: "The Effect of DNS on Tor's Anonymity" by Benjamin Greschbach et al. - https://www.internetsociety.org/doc/e-effect-dns-tors-anonymity "Avoiding The Man on the Wire: Improving Tor's Security with Trust-Aware Path Selection" by Aaron Johnson et al. - https://www.internetsociety.org/doc/avoding-man-wire-improving-tors-security-trust-aware-path-selection (more on proper path selection for Tor, possible attacks on Astoria). > Malware: "Dial One for Scam: A Large-Scale Analysis of Technical Support Scams" - наша статья, получившая Distinguished Paper Award! https://www.internetsociety.org/doc/dial-one-scam-large-scale-analysis-technical-support-scams "MaMaDroid: Detecting Android Malware by Building Markov Chains of Behavioral Models" by Enrico Mariconti et al. - https://www.internetsociety.org/doc/mamadroid-detecting-android-malware-building-markov-chains-behavioral-models "A Broad View of the Ecosystem of Socially Engineered Exploit Documents" by Stevens Le Blond et al. - https://www.internetsociety.org/doc/broad-view-ecosystem-socially-engineered-exploit-document s (можно проводить много интересных исследований на базе данных из VirusTotal). ... and much more interesting works on SGX, virtualization, and binary reassembly, etc. Plus, a DNS Privacy Workshop program - https://www.internetsociety.org/events/ndss-symposium/ndss-symposium-2017/dns-privacy-workshop-2017-programme

National Down Syndrome Society: Protecting Civil Rights of Different Brains, w/ Sara Weir | EDB 88

Play Episode Listen Later Jul 5, 2017 16:43

In this episode, Dr. Hackie Reitman speaks with Sara Hart Weir, President of the National Down Syndrome Society (NDSS). The National Down Syndrome Society is the leading human rights organization for all individuals with Down syndrome. NDSS provides state-of-the-art, comprehensive programming to all individuals with Down syndrome and their families with four main areas of programming which include: the National Advocacy & Policy Center, the National Buddy Walk® Program, Community Outreach and Resources and Public Awareness. Sara discusses the NDSS, the growth of Down syndrome acceptance, the work her organization has done to get the ABLE Act passed, and common misunderstandings of the condition. For more on the NDSS, visit www.ndss.org. Follow Different Brains on social media: https://twitter.com/diffbrains https://www.facebook.com/different.brains/ Check out more episodes of Exploring Different Brains! http://differentbrains.com/category/edb/

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Scott Carr, DataShield: Configurable Data Confidentiality and Integrity