Podcast appearances and mentions of michael liben

  • 7PODCASTS
  • 41EPISODES
  • 37mAVG DURATION
  • 1EPISODE EVERY OTHER WEEK
  • Nov 30, 2024LATEST

POPULARITY

20172018201920202021202220232024


Best podcasts about michael liben

Latest podcast episodes about michael liben

Heart to Heart with Anna
HeartWorks 2024 Update

Heart to Heart with Anna

Play Episode Listen Later Nov 30, 2024 41:40 Transcription Available


Send us a textUnlock the future of heart care and understand how a revolutionary cooperative platform is reshaping the landscape of congenital heart disease treatment. Join us as we explore the groundbreaking innovations at HeartWorks, a transformative program at the Mayo Clinic led by Dr. Tim Nelson. With heartfelt insights from Erin Borkowski, a dedicated heart mom, and Rachel Gott, an inspiring adult living with congenital heart disease, we delve into the challenges and advancements that are redefining patient care and clinical trial processes.Meet the pioneers behind the scenes as Dr. Nelson explains how HeartWorks is bridging the gap between research and real-world applications. By harnessing patient-contributed data, this initiative is overcoming the frustrations of traditional clinical trials, making them more effective and timely. Rachel Gott shares her personal journey with HeartWorks, emphasizing the significant impact of ongoing research and patient empowerment in the fight against congenital heart disease.Discover how HeartWorks is turning obstacles into opportunities through a data-driven cooperative platform. This patient-owned model is not only increasing enrollment in clinical trials but also creating a collaborative network of institutions across the nation. From engineering heart muscle cells from skin biopsies to making clinical trials more accessible, HeartWorks is revolutionizing the way we think about congenital heart disease care. Tune in to learn how you can support these efforts and contribute to a brighter future for individuals of all ages affected by congenital heart conditions.Thanks to our newest HUG Patron, Ayrton Beatty and long-standing Patrons: Laura Redfern, Pam Davis, Michael Liben, Nancy Jensen, Alicia Lynch, Deena Barber, Carlee McGuire, Carter & Faye Mayberry, and Frank Jaworski. We appreciate you!Support the showAnna's Buzzsprout Affiliate LinkBaby Blue Sound CollectiveSocial Media Pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsite

Heart to Heart with Anna
Fit and Fearless: Defying Limits with Tetralogy of Fallot

Heart to Heart with Anna

Play Episode Listen Later Nov 12, 2024 38:43 Transcription Available


Send us a textEver thought you could lead an exhilarating life despite a congenital heart defect? Meet Ben Johnson, a formidable heart warrior born with tetralogy of Fallot. Tune in as Ben, now 45, recounts his spirited childhood and how his heart condition didn't stop him from being a vibrant, active child. From hospital memories to a loving family and supportive teachers, Ben's story is a testament to resilience and the power of a strong support system. He takes us through his childhood escapades, proving that with the right mindset and community, a heart defect doesn't have to define your limits.Our conversation with Ben reveals the intricate journey of living with congenital heart defects, focusing on the visible reminders, including his scars and tattoos, and their role in shaping his life narrative. Delve into Ben's fitness journey where he embraces an active lifestyle with weightlifting, debunking common myths about limitations for heart patients. With the guidance of a personal trainer and self-monitoring, Ben exemplifies how managing health proactively can lead to a robust and fulfilling life, inspiring others with heart conditions to pursue their ambitions confidently.The episode doesn't just stop at physical well-being. We explore the significant link between exercise and mental health, sharing personal triumphs over post-surgical discomfort and the incredible benefits of targeted workouts. From stretching and strengthening exercises to the profound impact of endorphins, discover how maintaining an active routine can elevate mood and reduce anxiety. Encouraging inclusivity in physical activities, we stress that everyone, irrespective of physical limitations, can find joy and freedom in movement. Join us in fostering a community of heart warriors, advocating for empowerment, and cherishing each milestone along our shared journeys.Ben Johnson's contact information: https://tinyurl.com/y9yw53njThanks to our newest HUG Patron, Ayrton Beatty and long-standing Patrons: Laura Redfern, Pam Davis, Michael Liben, Nancy Jensen, Alicia Lynch, Deena Barber, Carlee McGuire, Carter & Faye Mayberry, and Frank Jaworski. We appreciate you!Support the showAnna's Buzzsprout Affiliate LinkBaby Blue Sound CollectiveSocial Media Pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsite

Heart to Heart with Michael
Podcasting as a Pathway to Healing and Hope

Heart to Heart with Michael

Play Episode Listen Later Nov 9, 2024 40:42


What if a shared journey through loss could spark an inspiring platform that brings healing to countless others? Welcome to the eighth season of "Bereaved But Still Me," where our personal stories intertwine with hope and resilience. Join me, Michael LIben, alongside my dear friends and colleagues, executive producer Anna Jaworski and producer Nancy Jensen, as we explore the birth and evolution of our podcast. The bonds we formed years ago, nurtured through parenting children with congenital heart defects, have created a sanctuary for bereavement support. Together, we honor the memories of our loved ones while fostering a sense of purpose and renewed strength.Our podcast is more than just a collection of stories; it is a testament to friendship and the power of collaboration. Nancy, who initially joined us as our first guest, now plays a crucial role as a producer, and her journey following the loss of her daughter Jessica highlights the importance of this community. Through personal experiences and shared tears, we have built a platform that not only serves as a vital outlet for grief but also reinforces our connections and shared mission. From the initial sparks of connection via an old-school listserv to our current reach, we reflect on the camaraderie that has driven us forward.In this heartfelt episode, we invite you to explore the therapeutic dimensions of podcasting with us. Our conversations with professionals like Silke Herwald and cherished friends such as Carter and Faye Mayberry have enriched our understanding of grief and healing. We engage in meaningful discussions on topics ranging from faith to the diverse ways people experience loss. As we expand our horizons to include episodes in multiple languages, our goal remains steadfast: to inspire hope and connection within our ever-growing community.Thanks to our newest HUG Patron, Ayrton Beatty and long-standing Patrons: Laura Redfern, Pam Davis, Michael Liben, Nancy Jensen, Alicia Lynch, Deena Barber, Carlee McGuire, Carter & Faye Mayberry, and Frank Jaworski. We appreciate you!We appreciate it when people support Hearts Unite the Globe podcasts. Thanks to our newest supporters - Annie Ulchak (Patreon) and Judy Miller (Buzzsprout)!Become a supporter of this podcast: https://www.spreaker.com/podcast/bereaved-but-still-me--2108929/support.

healing podcasting podcasters reflection globe pathway nancy jensen hearts unite michael liben
Heart to Heart with Anna
October 2024 Heart to Heart Live: From Trick-or-Treat to Compassion Fatigue

Heart to Heart with Anna

Play Episode Listen Later Nov 1, 2024 40:38 Transcription Available


Send us a textDo Halloween festivities bring more joy or concern when you're living with a congenital heart defect? Ashley DeMarco shares her journey growing up with complex heart conditions, turning personal challenges into stories of resilience. Alongside her, we hear from Michael Liben, who navigates grief with humor on his podcast "Bereaved but Still Me," and Rita, who provides a multi-generational perspective on congenital heart disease (CHD) with her family's experiences. Together, we unravel the nuances of navigating health and community as young adults and parents in the CHD world, painting a picture of hope and solidarity.As we transition into the spirit of Halloween, nostalgia and safety tips blend together in our lively discussions. We reminisce about trick-or-treating in tight-knit communities, while also highlighting the essential precautions for children with heart conditions during these festivities. The contrast between past and present perceptions of safety reveals a world that's both cautious and filled with connection through shared medical experiences. Our conversation is a heartwarming reminder of the bonds formed between parents and children, especially when magic and medicine intersect.Finally, we address the often-overlooked emotional toll of compassion fatigue. With stories from heart camps and non-CHD friendships, we explore the challenges of maintaining relationships while living with ongoing health issues. Rita reflects on a memorable live show, demonstrating how our means of connecting have evolved. The conversation serves as a beacon for understanding and connection, underscoring the profound need for community support. We invite listeners to contribute their insights and stories, enriching the dialogue and reinforcing the shared journey of the CHD community.Helpful Links:The Rita, Victoria and Heidi Scoggins' episode: https://tinyurl.com/3ScogginsAmy Erhart's first Heart to Heart with Anna episode: https://www.buzzsprout.com/62761/episodes/15810923One of Michael Liben's Heart to Heart with Anna episodes: https://www.buzzsprout.com/62761/episodes/736588Compassion Fatigue Episode: https://www.buzzsprout.com/62761/episodes/736588Thanks to our newest HUG Patron, Ayrton Beatty and long-standing Patrons: Laura Redfern, Pam Davis, Michael Liben, Nancy Jensen, Alicia Lynch, Deena Barber, Carlee McGuire, Carter & Faye Mayberry, and Frank Jaworski. We appreciate you!Support the showAnna's Buzzsprout Affiliate LinkBaby Blue Sound CollectiveSocial Media Pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsite

Heart to Heart with Anna
From Survivor to Supporter: Marina Lohri's Tricuspid Atresia Journey in Congenital Heart Care

Heart to Heart with Anna

Play Episode Listen Later Oct 15, 2024 35:16 Transcription Available


Send us a textMeet Marina Lohri, a true trailblazer in the world of congenital heart defects (CHDs). Born with tricuspid atresia, a ventricular septal defect, and an atrial septal defect, Marina's journey from a life-saving C-section to being among the first in Switzerland to undergo a modified-Fontan procedure at just 11 months old is nothing short of miraculous. In our conversation, Marina unfolds her inspiring story and shares her passion for working at atHeart Medical, where she is dedicated to promoting innovative solutions for those with similar heart conditions.Navigating the complexities of living with Atrial Fibrillation (AFib) and congenital heart defects is no small feat. Marina opens up about her personal experiences with rapid heart rates and the profound decision to undergo an ablation. As she contemplates the intricate considerations surrounding pregnancy with a congenital heart condition, we delve into the evolving medical advice she received and the diverse perspectives of healthcare professionals. Marina's story is a testament to the importance of specialized care and the expertise found at top hospitals in Switzerland.From finance to the medical field, Marina's career journey is a testament to aligning work with personal values and health needs. As she shares her transition to atHeart Medical, a startup focused on congenital heart defects, Marina highlights the rewards of working in a supportive environment that truly understands the challenges of living with CHD. Her advocacy extends beyond her professional life, as she continues to inspire others with similar heart conditions to pursue their passions and find purpose in their careers. Marina's resilience shines through as she navigates life's challenges with a positive attitude and a commitment to the CHD community.Helpful Links:atHeart Medical website: https://atheartmedical.comSupport Organizations:Mended Hearts: https://mendedhearts.org(In German)Herznetz: https://www.herznetz.ch/Fontanherzen: https://fontanherzen.ch/Swiss Heart: https://swissheart.ch/Thanks to our newest HUG Patron, Ayrton Beatty and long-standing Patrons: Laura Redfern, Pam Davis, Michael Liben, Nancy Jensen, Alicia Lynch, Deena Barber, Carlee McGuire, Carter & Faye Mayberry, and Frank Jaworski. We appreciate you!Support the showAnna's Buzzsprout Affiliate LinkBaby Blue Sound CollectiveSocial Media Pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsite

Heart to Heart with Anna
Unlocking Neurodevelopmental Breakthroughs: Impact of CHDs and Parental Influence

Heart to Heart with Anna

Play Episode Listen Later Oct 5, 2024 44:05 Transcription Available


Send us a textUnlock the latest in cardiac neurodevelopmental research with Dr. Dawn Ilardi, a distinguished clinical neuropsychologist, as we navigate the complexities of how congenital heart defects (CHDs) impact children's neurodevelopment. Discover the groundbreaking strides made by the Cardiac Neurodevelopmental Outcome Collaborative (CNOC), a global network of over 50 institutions revolutionizing clinical care and research. Explore cutting-edge advancements in brain imaging and gain insight into the often-overlooked influences of non-cardiac factors, such as the placenta, along with the indispensable role of family involvement in enhancing developmental outcomes.Hear a poignant story of parental vigilance that underscores the vital need for early detection and standardized imaging in pediatric cardiology. Despite the challenges faced by families with limited resources, new initiatives are bridging the gap between hospital-based care and private practice, providing essential support and education. Cultural perceptions of disabilities are also on the table, emphasizing the importance of culturally sensitive approaches tailored to diverse communities, ensuring all families receive the understanding and assistance they deserve.Finally, we shed light on the crucial connection between parental mental health and a child's developmental journey. Understand the nuances of capturing accurate baselines in neurodevelopmental assessments for children with CHD and why repeat evaluations are essential. As we discuss the emotional rollercoaster faced by parents, we stress the value of community resources and social media groups in offering support. Join us to appreciate the profound impact of parental well-being on a child's health trajectory and learn strategies for balancing the demands of caregiving with the necessity of self-care.Dr. Ilardi's previous "Heart to Heart with Anna" appearance: https://tinyurl.com/DawnIlardi2014Dr. Ilardi's website: https://www.pedneurocenter.comDr. Ilardi's email: DawnIlardi@pedneurocenter.comThanks to our newest HUG Patron, Ayrton Beatty and long-standing Patrons: Laura Redfern, Pam Davis, Michael Liben, Nancy Jensen, Alicia Lynch, Deena Barber, Carlee McGuire, Carter & Faye Mayberry, and Frank Jaworski. We appreciate you!Support the showAnna's Buzzsprout Affiliate LinkBaby Blue Sound CollectiveSocial Media Pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsite

Heart to Heart with Anna
Heart to Heart LIVE : An Open Mic with Anna and Her Community

Heart to Heart with Anna

Play Episode Listen Later Sep 25, 2024 52:11 Transcription Available


Send us a textHow do families navigate the uncharted waters of raising children with congenital heart disease (CHD)? Join us on a groundbreaking episode of Heart to Heart with Anna, where we host our very first live show with a studio audience! With guests like Amanda, Joey, Michael, Ayrton, Regina, Rachel, and Chris, you'll hear raw and honest conversations about everything from recent surgeries to the complexities of living with DiGeorge syndrome and HLHS. The live audience format brings an unscripted, spontaneous energy that's sure to engage and inspire.Ever wondered what it takes to grow a podcast network dedicated to CHD? We share our ambitious plans for the next five years, including launching podcasts in multiple languages such as Spanish, Urdu, and even an African language. You'll laugh along with us as we recount some of the humorous mishaps we've encountered—like losing an internet connection during a live show from a coffee shop! Our journey is a testament to the passion and community effort behind each episode, evolving from personal contacts to listener-generated suggestions.This episode also offers a deep dive into the emotional landscape of CHD families. Special guests Meg Didier and Annie Ulchek, HLHS survivors, discuss the unique challenges they face. We cover a range of sensitive topics such as the role of fathers, the experiences of career moms, and the emotional toll on siblings. Discover how CBD and THC are being used for anxiety and pain management, and meet a father who opens up about the scars left by navigating the challenge of raising a child with a CHD while also parenting two heart-healthy children. We cap off by emphasizing the importance of awareness initiatives like placing AEDs in schools and invite you, our listeners, to contribute your stories and feedback for future projects.Thanks to our newest HUG Patron, Ayrton Beatty and long-standing Patrons: Laura Redfern, Pam Davis, Michael Liben, Nancy Jensen, Alicia Lynch, Deena Barber, Carlee McGuire, Carter & Faye Mayberry, and Frank Jaworski. We appreciate you!Support the showAnna's Buzzsprout Affiliate LinkBaby Blue Sound CollectiveSocial Media Pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsite

Heart to Heart with Anna
Exploring the Therapeutic Power of Writing with Megan Tones and Sheri Turner

Heart to Heart with Anna

Play Episode Listen Later Sep 18, 2024 47:43 Transcription Available


Send us a textHow do you condense a lifetime of experiences into a single essay? Megan Tones reveals the challenges and triumphs of contributing to the "Heart of a Heart Warrior" anthology, where she found a way to spotlight positivity amid adversity. Joined by Sheri Turner, a supportive beta reader and CHD advocate, we explore how storytelling can be both a healing process and a community-building tool. Together, Megan and Sheri shed light on the transformative power of words in the CHD community.Anticipation builds as we discuss the upcoming volume of "The Heart of a Heart Warrior" book series, focusing on themes of resilience and reflection. This volume aims to capture a wide range of experiences, from parenting older children with CHD to navigating the unique challenges posed by COVID-19. We also delve into the neuropsychological hurdles faced by CHD patients and offer practical advice for those interested in contributing their stories. The episode takes a heartfelt turn as we grapple with themes of grief, loss, and support. Sheri shares her personal journey of questioning faith after the devastating loss of her son Thomas, highlighting the importance of validating the emotions of bereaved parents. We discuss the impact of sharing these deeply personal stories and Anna also announces how she and Sheri will be co-editing "The Heart of a CHD Angel" which will offer support and encouragement for bereaved CHD parents. Megan and Sheri's insights encourage potential writers to join the Scribophile group for support and feedback, ensuring their voices are heard. As we wrap up, we emphasize the significance of community advocacy and encourage listeners to leave a review, helping more people in the CHD community discover these stories of resilience and hope.Helpful links:Baby Hearts Press for more information about upcoming bookshttps://www.babyheartspress.comScribophile group for anthology contributorshttps://www.scribophile.com/groups/heart-to-heart-writing-groupThanks to our newest HUG Patron, Ayrton Beatty and long-standing Patrons: Laura Redfern, Pam Davis, Michael Liben, Nancy Jensen, Alicia Lynch, Deena Barber, Carlee McGuire, Carter & Faye Mayberry, and Frank Jaworski. We appreciate you!Support the showAnna's Buzzsprout Affiliate LinkBaby Blue Sound CollectiveSocial Media Pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsite

Heart to Heart with Anna
From Diagnosis to Advocacy: The Brave Little Hearts South Africa Story

Heart to Heart with Anna

Play Episode Listen Later Sep 10, 2024 45:37 Transcription Available


Send us a textWhat does it take to recognize the early signs of congenital heart defects (CHD) in a newborn? In this emotionally charged episode of "Heart to Heart with Anna," we welcome Raadhiyah Matthews, who recounts her harrowing journey with her daughter Thaakirah. From the initial dismissals by medical professionals to the profound struggles with feeding and gaining weight, Raadhiyah's candid story captures the relentless love and anxiety only a mother can understand. Her tireless advocacy led her to establish Brave Little Hearts South Africa, a beacon of hope for parents facing similar battles.We also hear about Thaakirah's incredibly quick diagnosis at Red Cross Memorial Children's Hospital, leading to immediate surgery and a rollercoaster of emotions. The stakes heighten as Raadhiyah describes the complications, including a severe brain infection that resulted in emergency neurosurgery and temporary paralysis. Raadhiyah's strength and resilience is laid bare, offering listeners a raw, unfiltered look into the challenges of navigating a child's severe health crisis.Cultural stigmas and the critical importance of pulse oximetry in early CHD detection form another essential part of our discussion. We explore the efforts of advocating for legislative changes to make this life-saving test mandatory, sharing personal stories that highlight ongoing struggles and successes. Concluding with a heartfelt tribute to Fareed Matthews, whose enduring legacy continues to inspire and support families through Brave Little Hearts South Africa, this episode is a deeply moving testament to the power of parental love, advocacy, and community in the face of congenital heart defects.Thanks to our newest HUG Patron, Ayrton Beatty and long-standing Patrons: Laura Redfern, Pam Davis, Michael Liben, Nancy Jensen, Alicia Lynch, Deena Barber, Carlee McGuire, Carter & Faye Mayberry, and Frank Jaworski. We appreciate you!Support the showAnna's Buzzsprout Affiliate LinkBaby Blue Sound CollectiveSocial Media Pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsite

Heart to Heart with Anna
Unexpected Diagnoses: DiGeorge (22q11.2 deletion) Syndrome in the Lawrence Family

Heart to Heart with Anna

Play Episode Listen Later Sep 4, 2024 34:58 Transcription Available


Send us a textWhat would you do if you suddenly discovered that multiple members of your family were living with an intricate genetic condition? Join us for a heartfelt conversation with Regina Lawrence as she opens up about her family's journey with DiGeorge syndrome (a.k.a. 22q11.2 deletion syndrome). From the moment they learned about Aubrey's diagnosis in utero, to the immediate surgeries that followed her birth, Regina shares the raw, emotional experiences of navigating multiple complex medical needs. Dive into the Lawrence family's world, where resilience is not just a necessity but a way of life.Listen as Regina recounts the unexpected revelation of her husband's diagnosis at age 35 and the impact it had on their family dynamics. Discover how the Lawrences juggle specialized medical care, feeding challenges, and the critical role of American Sign Language and communication tablets in Aubrey's day-to-day life. Learn about Tina, Aubrey's sister, and the family's experiences at Boston Children's Hospital. Regina's advocacy work within the CHD community also offers a passionate perspective on why genetic testing is paramount. This episode promises to leave you with a profound understanding of DiGeorge syndrome and the unbreakable spirit of a family united in their fight.Link to The CHC Podcast: Congenital Heart Conversations: https://tinyurl.com/CHCPodcastAppleThanks to our newest HUG Patron, Ayrton Beatty and long-standing Patrons: Laura Redfern, Pam Davis, Michael Liben, Nancy Jensen, Alicia Lynch, Deena Barber, Carlee McGuire, Carter & Faye Mayberry, and Frank Jaworski. We appreciate you!Support the showAnna's Buzzsprout Affiliate LinkBaby Blue Sound CollectiveSocial Media Pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsite

Heart to Heart with Anna
Discovering a Myocardial Bridge at 65: Jeff's Journey to Heart Health Advocacy

Heart to Heart with Anna

Play Episode Listen Later Aug 29, 2024 32:15 Transcription Available


Send us a textHave you ever ignored a small discomfort only to realize it was something far more serious? Join us on "Heart to Heart with Anna" for an eye-opening conversation with Jeff, the creator and host of a non-profit podcast network, who discovered a congenital heart defect called a myocardial bridge at the age of 65. Jeff recounts his terrifying experience of cycling through strange symptoms and surviving a heart attack, ultimately learning the necessity of paying attention to one's body. Through his personal narrative, Jeff underscores the critical role of support networks and timely medical intervention in overcoming health challenges.What happens when traditional medical tests don't give you the answers you need? In this episode, we delve into the complexities of diagnosing and treating ventricular tachycardia and myocardial bridging. Jeff shares the life-saving journey that led him to create his podcast, "Imperfect Heart," focusing on raising awareness about these underdiagnosed conditions. From the importance of self-advocacy in medical settings to the need for better education in medical schools, Jeff's mission is to use his "bonus time" to make a positive impact on the lives of others. Listen in to learn about the life-changing potential of surgical intervention and the power of recognizing and acting on heart-related symptoms.Helpful Links:Jeff's Imperfect Heart podcast: https://www.myimperfectheart.com/Stanford's Myocardial Bridge Program: https://stanfordhealthcare.org/medical-conditions/blood-heart-circulation/myocardial-bridging.htmlWe're Rolling Studios' Instagram page: https://www.instagram.com/wererollingstudios/Thanks to our newest HUG Patron, Ayrton Beatty and long-standing Patrons: Laura Redfern, Pam Davis, Michael Liben, Nancy Jensen, Alicia Lynch, Deena Barber, Carlee McGuire, Carter & Faye Mayberry, and Frank Jaworski. We appreciate you!Support the Show.Anna's Buzzsprout Affiliate LinkBaby Blue Sound CollectiveSocial Media Pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsite

Heart to Heart with Anna
From Heart Block to Myotonic Dystrophy: A Survivor's Tale

Heart to Heart with Anna

Play Episode Listen Later Aug 14, 2024 33:58 Transcription Available


Send us a Text Message.What if your heart's rhythm was out of sync from birth, yet you persevered to defy medical odds? Join us as Gwenyth Murphy, a resilient second-generation congenital heart defect survivor, shares her compelling journey of managing complete heart block and other heart conditions. From coping with an abnormally low heart rate as a child to receiving her first pacemaker just before college, Gwenyth provides an inspiring look at the evolution of her treatments and the groundbreaking procedure she anticipates.Gwenyth's story takes a fascinating turn as she recounts the unexpected diagnosis of myotonic dystrophy, a condition initially masked by her heart defect symptoms. Discover how this genetic muscular dystrophy was finally identified through persistent symptoms and a critical health crisis after childbirth. Gwenyth sheds light on the often delayed and misdiagnosed nature of the condition, emphasizing the importance of comprehensive medical evaluations and genetic testing in uncovering interconnected health issues.Self-advocacy emerges as a crucial theme throughout this episode. Gwenyth's experience underscores the necessity of seeking second opinions and consulting specialists to unravel the complexities of managing multiple health conditions. We delve into her daily strategies for coping with myotonic dystrophy, including medications, physical therapy, and mobility aids, and explore the emotional and mental resilience required to navigate such a challenging medical landscape. This episode is a powerful testament to perseverance, the importance of support, and the relentless pursuit of well-being.Helpful Links:Baby Hearts Press (for The Heart of a Heart Warrior): https://www.babyheartspress.comThanks to our newest HUG Patron, Ayrton Beatty and long-standing Patrons: Laura Redfern, Pam Davis, Michael Liben, Nancy Jensen, Alicia Lynch, Deena Barber, Carlee McGuire, Carter & Faye Mayberry, and Frank Jaworski. We appreciate you!Support the Show.Anna's Buzzsprout Affiliate LinkBaby Blue Sound CollectiveSocial Media Pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsite

Heart to Heart with Anna
Navigating Life with HLHS and Marfan Syndrome: Rachel's Powerful Story

Heart to Heart with Anna

Play Episode Listen Later Aug 7, 2024 32:12 Transcription Available


Send us a Text Message.Discover the remarkable resilience of Rachael Gott, our extraordinary guest born with hypoplastic left heart syndrome (HLHS). Despite her condition remaining uncorrected, Rachel has navigated a complex medical journey, including ten cardiac ablations and two device implants, all while avoiding open-heart surgeries. Rachael also faces Marfan syndrome, which adds another layer of complexity to her life. Join us as Rachael shares her inspiring story, highlighting her ability to overcome innumerable challenges and offering hope to others with congenital heart disease (CHD).Rachael's journey is one of incredible strength and persistence. She opens up about her experiences with multiple heart rhythm issues and the difficulties posed by various medications. As she discusses her forthcoming plans for an open-heart Maze procedure and potential heart and kidney transplants at the Cleveland Clinic, Rachael provides us with a unique glimpse into the emotional and physical toll of living with severe heart conditions. Her late diagnosis in her twenties brings a poignant perspective on the emotional reactions of her parents and how they coped with the news, underscoring the importance of a robust support system.From a seemingly normal childhood filled with sports, singing, and dancing, to the shocking discovery of her condition following severe chest pain, Rachael's story is a testament to the human spirit's endurance. The medical community's awe at Rachael's case highlights the rarity and complexity of congenital heart defects like HLHS. Rachael's experience underscores the importance of community support and the strength she's found in connecting with others facing similar challenges. Tune in to hear her express gratitude for these connections and learn how her journey may soon be shared in a book about resilience.Thanks to our newest HUG Patron, Ayrton Beatty and long-standing Patrons: Laura Redfern, Pam Davis, Michael Liben, Nancy Jensen, Alicia Lynch, Deena Barber, Carlee McGuire, Carter & Faye Mayberry, and Frank Jaworski. We appreciate you!Support the Show.Anna's Buzzsprout Affiliate LinkBaby Blue Sound CollectiveSocial Media Pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsite

Heart to Heart with Anna
Chapter 10: Life Lessons from Congenital Heart Defects: Stories of Hope and Resilience

Heart to Heart with Anna

Play Episode Listen Later Jul 30, 2024 35:54 Transcription Available


Send us a Text Message.What happens when resilience meets a congenital heart defect? Join us as we uncover the extraordinary journeys of women who have turned their medical challenges into stories of hope and triumph. Begin with Emily Falcon's deeply moving "A Letter to my Younger Self," where she offers wisdom and reflections that will resonate with anyone facing life's obstacles. Move to Michelle Anderson DeRoo's powerful tale in "Exceeding Expectations," where she sheds light on how advocacy and compassionate care can defy even the grimmest medical predictions. And don't miss Allison Holmes' insightful reflections from over 50 years of living with a single ventricle heart, offering lessons learned and immense inspiration.In Chapter 10 of "The Heart of a Heart Warrior," we delve into the emotional rollercoaster of growing up with a severe heart defect. Michelle's narrative takes us through the trials and triumphs, with low oxygen levels and dire prognoses threatening to derail dreams—until the compassionate Dr. Hurley steps in. Experience the harrowing and hopeful moments that underscore the necessity of perseverance, advocacy, and compassionate medical care in overcoming life-threatening health challenges. We also benefit from both Emily's and Allison's reflections on what they've learned growing up with heart defects.We close this chapter, and this episode, by exploring the unique psychological and emotional hurdles parents face when raising children with congenital heart defects. We discuss how the term "heart warrior" instills hope and courage amidst the unpredictability of chronic illness. Reflecting on the transformative advancements in pediatric cardiology, the collaborative efforts between healthcare professionals, and the unyielding support from parents, this chapter is a heartfelt tribute to the resilience and achievements of heart warriors and their families. Tune in to be inspired by stories that showcase the enduring spirit and remarkable strength of the congenital heart community.To buy this book, visit Baby Hearts Press (https://www.babyheartspress.com)Become a podcast subscriber: https://www.buzzsprout.com/62761/supportThanks to our newest HUG Patron, Ayrton Beatty and long-standing Patrons: Laura Redfern, Pam Davis, Michael Liben, Nancy Jensen, Alicia Lynch, Deena Barber, Carlee McGuire, Carter & Faye Mayberry, and Frank Jaworski. We appreciate you!Support the Show.Anna's Buzzsprout Affiliate LinkBaby Blue Sound CollectiveSocial Media Pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsite

Heart to Heart with Anna
Chapter 9 of "The Heart of a Heart Warrior" Featuring Heart Warrior Authors

Heart to Heart with Anna

Play Episode Listen Later Jul 23, 2024 47:06 Transcription Available


Send us a Text Message.How do heart warriors find incredible strength amidst life's most challenging moments? In this episode of "Heart to Heart with Anna," we bring you deeply touching and empowering stories from individuals who have triumphed over congenital heart defects (CHD). Join us as Megan Tones sets the stage with an introduction to Chapter 9, followed by poignant excerpts from Tori Geiger's "From Vulnerable to Victorious" and Jessica Carmel's "The Hearts of a Girl." Tori's defining moment during a high school sports event and Jessica's persistent battle with gallbladder disease highlight the resilience and courage of those navigating life with CHD.Discover the transformative power of storytelling through Kimberly Russell's essay, "You Should Write a Book," and Dr. Brandon Lane Phillips' journey from a rural Louisiana childhood to becoming a successful pediatric cardiologist. Kimberly's narrative underscores how sharing personal experiences can be a beacon of hope, especially for parents of children with CHD. Meanwhile, Dr. Phillips' narrative based on "When I Wished Upon a Star" showcases the profound impact of mentorship and personal connections, enriched by his encounters with child actor Jeremy Miller.As we wrap up, Megan and I reflect on the invaluable contributions of Baby Hearts Press, a cornerstone for the CHD community since 1996. We discuss our experiences with the "Heart of a Heart Warrior" series and urge listeners to advocate for these pivotal resources at their local libraries. This episode is a testament to the power of community, encouraging everyone to draw strength from shared stories and support each other through the most challenging journeys. Join us for an episode that promises inspiration, empowerment, and a reminder that no one faces their battles alone.To buy this book, visit Baby Hearts Press (https://www.babyheartspress.com)Become a podcast subscriber: https://www.buzzsprout.com/62761/supportThanks to our newest HUG Patron, Ayrton Beatty and long-standing Patrons: Laura Redfern, Pam Davis, Michael Liben, Nancy Jensen, Alicia Lynch, Deena Barber, Carlee McGuire, Carter & Faye Mayberry, and Frank Jaworski. We appreciate you!Support the Show.Anna's Buzzsprout Affiliate LinkBaby Blue Sound CollectiveSocial Media Pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsite

Heart to Heart with Michael
Honoring a Mother's Strength and Love: The Liben Family Stories

Heart to Heart with Michael

Play Episode Listen Later Jun 6, 2024 38:06


Can a mother's love shape an entire family's destiny? Join us for a deeply moving tribute to Zipporah Liben, the resilient mother of host Michael Liben and a beacon of strength for her family. Alongside Michael are his siblings, Shirah Ozery and Rabbi Dan Liben, and guest host Anna Jaworski. They come together to share intimate stories and memories that celebrate Zipporah's life, her unique upbringing between New York and Tel Aviv, and her vital contributions to the Zionist movement. Journey with us as we hear about Zipporah's unwavering love for Israel, her role as a devoted mother, and the indelible impact she left on her children and grandchildren.Explore the profound and often challenging experience of anticipatory grief as the Liben family recounts their mother's strength and resilience during the decline of their father's health. Shirah and Dan offer heartfelt insights into their mother's renewed connection to Israel post-Six-Day War and her inspiring feminist influence. Listen to stories of Zipporah's courage, hospitality, and her involvement in pivotal social movements. Through the laughter and tears, Michael, Shirah, and Dan honor her legacy and share how her values continue to guide and inspire their lives. This episode is a touching homage to a remarkable woman whose spirit and teachings resonate through generations.Links to “Bereaved But Still Me” Social Media and Podcast Pages:Apple Podcasts: https://podcasts.apple.com/us/podcast/bereaved-but-still-me/id1333229173Facebook: https://www.facebook.com/HugPodcastNetworkYouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5ZwWebsite: https://www.hug-podcastnetwork.com/Become a Patron: https://www.hug-podcastnetwork.com/patreon.html ORhttps://www.spreaker.com/podcast/bereaved-but-still-me--2108929/support

Heart to Heart with Michael
A Parent's Tale of Grief, Special Needs and the Healing Power of Writing

Heart to Heart with Michael

Play Episode Listen Later May 2, 2024 34:12


Join us in this episode as our host Michael Liben opens up about the complexities of explaining death to his children and welcomes the insights of James Robinson who did likewise with his little ones. Together, they'll explore James' son Nadav's impactful life, marked by a congenital heart defect, and the unwavering spirit it revealed. His story, though filled with vulnerability, is a testament to the remarkable endurance of love and the human soul.Parenting children with special medical needs is unique, often requiring parents to balance transparency with the preservation of childhood innocence. In this heartfelt exchange, between bereaved fathers Michael and James, they recount the promises made to their children to be forthright in the face of life-altering medical conditions. Discover how their children surprised them with their remarkable adaptability, and how the definition of 'normal' was reshaped within the walls of a home where love and medical care were intertwined.They conclude this episode by traversing the path of healing that unfolds in the wake of profound loss. James shares his family's transformative road trip across America, an exploration of grief and remembrance following Nadav's passing. This moving experience culminates in the creation of "More Than We Expected: Five Years with a Remarkable Child," a memoir by James that seeks to offer comfort and connection to those on similar journeys. Through these stories, we honor the legacies of our loved ones and the infinite capacity of the human heart to heal and embrace resilience.To Order James' book, use this link: https://www.amazon.com/More-Than-We-Expected-Remarkable/dp/1637588224Or you can visit his website here: https://morethanamemoir.com/Links to “Bereaved But Still Me” Social Media and Podcast Pages:Apple Podcasts: https://podcasts.apple.com/us/podcast/bereaved-but-still-me/id1333229173Facebook: https://www.facebook.com/HugPodcastNetworkYouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5ZwWebsite: https://www.hug-podcastnetwork.com/Become a Patron: https://www.hug-podcastnetwork.com/patreon.html ORhttps://www.spreaker.com/podcast/bereaved-but-still-me--2108929/support

Heart to Heart with Michael
S8 E3 Philip Proctor Remembering Melinda

Heart to Heart with Michael

Play Episode Listen Later Mar 7, 2024 49:18


Returning guest, Phil Proctor, is a man who needs no introduction. An actor, voice actor, writer, producer, comedian, podcaster and founding member of the Firesign Theatre quartet. Phil has been in the entertainment industry for 50 years, and In this episode, he talks with host, Michael Liben about the love of his life -- his soulmate, Melinda Peterson, who died suddenly after more than thirty years of marriage. In this episode, Phil discusses his love, his loss and how he found, in his words, laugh after death.Links to “Bereaved But Still Me” Social Media and Podcast Pages:Apple Podcasts: https://podcasts.apple.com/us/podcast/bereaved-but-still-me/id1333229173Spreaker: https://www.spreaker.com/show/heart-to-heart-with-michaelFacebook: https://www.facebook.com/HugPodcastNetworkYouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5ZwWebsite: https://www.hug-podcastnetwork.com/Patreon: https://www.patreon.com/hearttoheart Become a supporter of this podcast: https://www.spreaker.com/podcast/bereaved-but-still-me--2108929/support.

Heart to Heart with Michael
Companion Pet Loss - From Grief to Inspiration with Erica Messer

Heart to Heart with Michael

Play Episode Listen Later Feb 1, 2024 32:11


Erica Messer talks with Bereaved But Still Me host Michael Liben about pet loss and how she wasn't able to find resources to help her cope with her grief. After losing her beloved cat, Wolfgang, she discovered a need for pet-loss resources. With her mother's encouragement, she started Wolfie's Wish, a company providing resources for those who are grieving the loss of a pet.Erica's website: https://wolfieswish.com/Links to “Bereaved But Still Me” Social Media and Podcast Pages:Apple Podcasts: https://podcasts.apple.com/us/podcast/bereaved-but-still-me/id1333229173Spreaker: https://www.spreaker.com/show/heart-to-heart-with-michaelFacebook: https://www.facebook.com/HugPodcastNetworkYouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5ZwWebsite: https://www.hug-podcastnetwork.com/Patreon: https://www.patreon.com/hearttoheart

Heart to Heart with Anna
Enriching Lives with CHD Support Networks and Healing Stories

Heart to Heart with Anna

Play Episode Listen Later Jan 31, 2024 47:54 Transcription Available


Embark with us as we illuminate the enduring pulse of Hearts Unite the Globe, the non-profit championing an array of deeply impactful podcasts. From the heartfelt dialogues of Heart to Heart with Anna to the comforting echoes of Bereaved but Still Me, we're uniting voices across the congenital heart disease (CHD) community. Our mission extends beyond conversation; it's a call to empower, educate, and enrich the lives entwined with CHD and bereavement. We're unveiling exciting tweaks to our website, orchestrated by the talented Lauren England, that streamline your access to our treasure trove of resources and introduce a town hall-style podcast format that embraces the shared experiences of our listeners.The journey continues as we traverse the landscape of loss and healing, led by the poignant narratives from Michael Liben's Bereaved But Still Me to the hope-infused Everyday Miracles. As executive producer, I wear my pride on my sleeve for the platform we've created that fosters profound conversations on life's toughest trials. Dive into the compassionate offerings on the HUG website, where support groups, therapy options, and unique programs like bravery beads await to guide individuals at every step of their heart journey. Discover the myriad of voices represented in our podcasts, including the wisdom of those who've walked the path of grief, and let them be your beacon of light in the darker moments.As the episode draws to a close, we raise the banner for the unwavering support these families need, recognizing the vital role of organizations like the Adult Congenital Heart Association and the Cardiac Neurodevelopmental Outcome Collaborative. The heart's resilience is mirrored in the community itself, where heart-related camps offer solace and solidarity. Your support is the lifeline for our mission, and we invite you to contribute in any way you can—financially, as a volunteer, or simply by sharing our cause. Together, let's forge ahead towards the momentous goal of hiring an executive director, and continue to extend our hand to more families navigating through the world of CHD.Visit the HUG website here: https://www.heartsunitetheglobe.comAnother way you can help financially is to subscribe via Buzzsprout here: https://www.buzzsprout.com/62761/supporters/newSupport the showAnna's Buzzsprout Affiliate LinkBaby Blue Sound CollectiveSocial Media Pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsite

The Selfish Griever
Grieving Dad Supported By His Community - Michael Liben 049

The Selfish Griever

Play Episode Listen Later Oct 13, 2023 57:40


A grieving father navigates the heartbreaking loss of his daughter, finding solace and strength through the support of his Jewish community and traditions in the ongoing journey of mourning, while embracing the power of memories to keep her spirit alive.Michael Liben is also the host of the podcast Bereaved But Still Me. Click Here to listen to Whitney's interview on his podcast. Click Here to watch the full episode on YouTube. Are you a huge fan of the show? Just 20 patrons sponsoring $4.99/month can cover our monthly production costs. Will you join this circle of support? Your gesture is more than monetary; it's a commitment to helping others find strength in their grief journey. Click Here to supportWe hope you enjoyed this episode Click here, scroll to the bottom, tap to rate, and select “Write a Review.” Let me know what you liked most about the episode and what you'd like to hear more of.Thank you for your support!Music by Coma-Media from PixabayPodcast hosted on Spreaker

Podcasts – Jewish Sacred Aging
Seekers of Meaning 2/17/2023: Michael Liben, host of the “Bereaved but still me” podcast

Podcasts – Jewish Sacred Aging

Play Episode Listen Later Feb 17, 2023 35:50


On this week's episode of the Seekers of Meaning TV Show and Podcast, Rabbi Address speaks with Michael Liben, host of the Bereaved But Still Me podcast. [Read more...] The post Seekers of Meaning 2/17/2023: Michael Liben, host of the “Bereaved but still me” podcast appeared first on Jewish Sacred Aging.

meaning seekers bereaved jewish sacred aging rabbi address michael liben
Landscape of Loss: Haven the Podcast
Realistic Faith, Going on Without a Child, and Shiva with Michael Liben

Landscape of Loss: Haven the Podcast

Play Episode Listen Later Feb 16, 2023 43:42


Grief takes many forms, and being surrounded by a community can help you learn how to re-enter the world and begin the lifelong mourning process. Joining us today on Haven the Podcast is Michael Liben, husband, father of three, and podcast host, to discuss the loss of his 15-year-old daughter, Liel. In this episode, you will hear about Michael and his wife's difficulty having children, their two surviving children, and the health issues Liel experienced before her death. Michael had a slightly different attitude to his daughter's inevitable death, and today, he explains how he reacted to the news that she would not make it, how his family reacted to his attitude, the decision they made to donate her organs, and what they felt when she passed. We hear all about mourning in Judaism, shiva, and how food, community, and laughter saved him in his grief. Finally, Michael tells us why he is a strong believer that grief shared is grief lightened and about the podcast he has been hosting for seven years in his daughter's memory. This beautiful episode about being realistic in your faith, mourning with loved ones, and continuing life after losing a child is not one to be missed, so tune in now. Key Points From This Episode: •   A warm welcome to today's guest, Michael Liben. •    He tells us about his children, the health issues his daughter experienced, and her death. •    Michael explains why prayer is a conversation and how he approached his daughter's death.•    How his children reacted to Michael's attitude to their sister's death.•    The dangers of a pacemaker coming in contact with a cell phone. •    Why autism was more difficult for Michael to handle than a heart defect. •    Why he was happy to donate his daughter's organs and the release he felt when she died.•    Jen tells us about her experience of talking to a priest after losing her son. •    Michael explains grief in Judaism and how laughter saved him during shiva.•    How sharing a meal connects you in mourning. •    The perspective created by realizing people outside of the immediate family lost someone too. •    Why grief shared is grief lightened. •    Michael tells us about the podcast that he hosts in his daughter's memory. Links Mentioned in Today's Episode:Michael Liben on LinkedInMichael Liben on TwitterBereaved But Still MeBereaved But Still Me on AmazonHavenTellwell

Heart to Heart with Anna
Beyond CHDs: Dealing with Autism & Epilepsy

Heart to Heart with Anna

Play Episode Listen Later Feb 20, 2022 30:00


This is the 3rd of 4 episodes of Heart Dad Sunday -- a mini-series developed for Heart Month, February 2022. Heart Dad Frank Jaworski returns in this episode as the Guest Host. He interviews long-time friend, Michael Liben, about what it was like to raise a daughter with a critical congenital heart defect in Israel. Not only did Michael's daughter have double-outlet right ventricle, but she also had autism and she later developed epilepsy as well. Michael is the father of three children: 27-year old Idan, 25-year-old Sapir, and forever 15-year old Liel. Michael and Leora have been married for 34 years and Michael made aliyah to Jerusalem after college.Michael was a former filmmaker, high school teacher, adjunct professor of television and radio production, and he now works in security. For almost 6 years Michael has been working with Frank's wife, Anna, as the Host of a bereavement podcast now entitled, “Bereaved But Still Me.”Links to Michael's other appearances on "Heart to Heart with Anna"Congenital Heart Defects Around the Globe: IsraelLiel and Her Many Gifts: A Family's Decision to Donate One Girl's Lungs, KidneysMichael and Jamie: An Interview with an Organ Recipient and Donor's DadLink to Michael's podcast -- Bereaved But Still MePlease visit our Social Media and Podcast pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsiteAnna's Buzzsprout Affiliate Link (we both benefit if you sign up with Buzzsprout with my link - yay!) Support the show (https://www.patreon.com/HearttoHeart)

That's the #Truth
Michael Liben | Bereaved but Still Me

That's the #Truth

Play Episode Listen Later Jan 28, 2022 58:26


Michael Liben | Bereaved But Still Me Today's Guest is Michael Liben. Michael is a former filmmaker, high school teacher and real estate agent.  He currently works in hotel security and has been a podcaster for the last five years.  His podcast, Bereaved But Still Me, is part of the Hearts Unite the Globe Podcast Network and can be found anywhere you get your podcasts. During this episode Michael shares a glimpse into the precious life of his daughter, some of the emotions he experienced, and decisions he had to make after losing her, and the importance of organ donation. He discusses the role faith played in those moments and tackles the centuries-old theological debate topic of free will. Learn about how his career in podcasting began, enjoy some humorous stories along the way, and gain some amazing insight into why Michael's message that "Moving forward, is not moving away," is so important. Connect with Daniel and Jenny:Website:https: //www.muscatellministries.com/Website:https: //www.jennymuscatell.com/Insta:https: //www.instagram.com/jennymuscatell/Facebook: https://www.facebook.com/JenMuscatellPodcast: https://www.buzzsprout.com/1737272Connect with Michael: Facebook: https://www.facebook.com/HugPodcastNetworkWebsite: https://www.hug-podcastnetwork.com/bereaved-but-still-me.htmlInstagram: https://www.instagram.com/bereavedbutstillme/Buzzsprout: https://www.buzzsprout.com/123208/Spotify: https://open.spotify.com/show/4x3mRH5KehngqqbS0fjBn8Youtube: https://www.youtube.com/channel/UCI12nUO0ERs9ohFMB9_yw0w

Heart to Heart with Michael
David Ossman On Philip Austin: What's All This Brouhaha?

Heart to Heart with Michael

Play Episode Listen Later Jun 3, 2021 31:18


David Ossman is an American writer and performer, best known as a quarter of The Firesign Theatre, whose collective work includes comedy albums, plays, films, and radio shows. He's best known for his role as George Leroy (“Porgie”) Tirebiter in Firesign's LP “Don't Crush That Dwarf, Hand Me The Pliers,” a hero of two mystery novels and hours of broadcasts. His Catherwood the Butler delivers the classic line, “What's all this Brouhaha?” to Nick Danger. Ossman's “solo” album, “How Time Flys” was nominated for a Nebula, and his 50th Anniversary version of “The War of The Worlds," produced by his wife, Judith Walcutt, was nominated for a Grammy. He can be seen (as Cornelius, the ant) in Pixar's “A Bug's Life."During the 1980s, Ossman returned to his “original” profession as a radio host, writer, and teacher, with historic broadcasts for NPR and WGBH, along with equally historic all-star-cast radio events like “Empire of the Air," “We Hold These Truths,” and “The Wonderful Wizard of Oz," independently created for Walcutt's Otherworld Media non-profit studio. Returning to Firesign for their 25th Anniversary Tour and subsequent albums and performances, Ossman now edits the group's work, collected by the Library of Congress, for publication.In this episode, Mr. Ossman shares with Michael Liben what it was like working with Philip Austin and how his death has affected him.Links mentioned in this program:David Ossman on Firesign Theater site: http://www.firesigntheatre.com/media/media.php?member=OssmanInteresting Firesign Theater stuff that will change your life: http://firesigntheater.comLinks to “Bereaved But Still Me” Social Media and Podcast Pages:Apple Podcasts: https://podcasts.apple.com/us/podcast/bereaved-but-still-me/id1333229173Spreaker: https://www.spreaker.com/show/heart-to-heart-with-michael Facebook: https://www.facebook.com/HugPodcastNetwork YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw Website: https://www.hug-podcastnetwork.com/If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Heart to Heart with Michael
Grief and Unexpected Allies

Heart to Heart with Michael

Play Episode Listen Later Aug 6, 2020 30:01


Grief and trauma expert, Edy Nathan, LCSW, MA, joins Michael Liben in this episode of "Heart to Heart with Michael' with a unique outlook on grief and loss. Edy Nathan uses a number of techniques to help people find their "new ordinary." Viewing her patients through the prism of grief, Edy Nathan helps people look at their preconceived notions in a whole new way.How do people get out of their pain? How can people survive this COVID-19 world, especially when loved ones die? How can people experience a sense of community when everyone has to wear face masks and social distancing is the new norm? Tune in to this episode of "Heart to Heart with Michael" for answers to these questions and much more!To purchase a copy of Edy Nathan's book, "It's Grief: The Dance to Self-Discovery Through Trauma and Loss," visit her website at https://edynathan.com/Please take a moment to follow us on your preferred social media platforms:Apple Podcasts: https://podcasts.apple.com/us/podcast/heart-to-heart-with-michael/id1333229173%2520Facebook: https://www.facebook.com/HUGPodcastNetwork/YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5ZwInstagram: https://www.instagram.com/hugpodcastnetwork/

Heart to Heart with Michael
Grief and Unexpected Allies

Heart to Heart with Michael

Play Episode Listen Later Aug 6, 2020 30:01


Grief and trauma expert, Edy Nathan, LCSW, MA, joins Michael Liben in this episode of "Heart to Heart with Michael' with a unique outlook on grief and loss. Edy Nathan uses a number of techniques to help people find their "new ordinary." Viewing her patients through the prism of grief, Edy Nathan helps people look at their preconceived notions in a whole new way.How do people get out of their pain? How can people survive this COVID-19 world, especially when loved ones die? How can people experience a sense of community when everyone has to wear face masks and social distancing is the new norm? Tune in to this episode of "Heart to Heart with Michael" for answers to these questions and much more!To purchase a copy of Edy Nathan's book, "It's Grief: The Dance to Self-Discovery Through Trauma and Loss," visit her website at https://edynathan.com/Please take a moment to follow us on your preferred social media platforms:Apple Podcasts: https://podcasts.apple.com/us/podcast/heart-to-heart-with-michael/id1333229173%2520Facebook: https://www.facebook.com/HUGPodcastNetwork/YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5ZwInstagram: https://www.instagram.com/hugpodcastnetwork/

Things I Found Online Podcast
Grief, Donorship & Healing

Things I Found Online Podcast

Play Episode Listen Later Jan 16, 2020 59:26


Bereaved father Michael Liben shares the story of his daughter Liel, the fellowship he's found with others in the bereaved community, his decision to donate Liel's organs and finding support online.

Heart to Heart with Michael
A Look Back at 2019

Heart to Heart with Michael

Play Episode Listen Later Dec 5, 2019 30:03


This is a look back at the Heart to Heart with Michael episodes that aired in 2019. Host Michael Liben reviews Season 3, the Guests and provides excerpts from each episode. Special thanks to all of our Guests: Nancy Jensen, Peter Pugliese, Julie Joiner and Brittany Ramos, Danny Mack, Ron Glenn Kelly, Alden Solovy, Hannah Sherebrin, and Dr. Sandra Schatz. Thanks, too, to C Jay Anderson for being a Guest Host and conducting an insightful interview with Michael Liben.This look back showed how Season 3 really was about how we can find healing in the process of our grieving. It also showed us that grieving is really another way of loving those who have passed. We hope that this episode helps you in your own grief process.

Heart to Heart with Michael
A Look Back at 2019

Heart to Heart with Michael

Play Episode Listen Later Dec 5, 2019 30:03


This is a look back at the Heart to Heart with Michael episodes that aired in 2019. Host Michael Liben reviews Season 3, the Guests and provides excerpts from each episode. Special thanks to all of our Guests: Nancy Jensen, Peter Pugliese, Julie Joiner and Brittany Ramos, Danny Mack, Ron Glenn Kelly, Alden Solovy, Hannah Sherebrin, and Dr. Sandra Schatz. Thanks, too, to C Jay Anderson for being a Guest Host and conducting an insightful interview with Michael Liben.This look back showed how Season 3 really was about how we can find healing in the process of our grieving. It also showed us that grieving is really another way of loving those who have passed. We hope that this episode helps you in your own grief process.

Heart to Heart with Michael
From Tragedy to Blessing

Heart to Heart with Michael

Play Episode Listen Later Apr 4, 2019 30:11


For the very first time the Host of our program, Michael Liben, will be on the other side of the microphone as he becomes the Guest and Guest Host C Jay Anderson takes over! Michael shares with C Jay what it was like to lose his daughter at a young age and how her death, although a tragedy for his family, became a blessing to 4 other families. Tune in to hear how Micheal's family chose to make a difference and what it has meant in his life.

Heart to Heart with Michael
From Tragedy to Blessing

Heart to Heart with Michael

Play Episode Listen Later Apr 4, 2019 30:11


For the very first time the Host of our program, Michael Liben, will be on the other side of the microphone as he becomes the Guest and Guest Host C Jay Anderson takes over! Michael shares with C Jay what it was like to lose his daughter at a young age and how her death, although a tragedy for his family, became a blessing to 4 other families. Tune in to hear how Micheal's family chose to make a difference and what it has meant in his life.

Heart to Heart with Michael
Living with a Culture of Grief

Heart to Heart with Michael

Play Episode Listen Later Nov 28, 2018 29:31


In this episode of "Heart to Heart with Michael" Anna Jaworski takes charge as the Guest Host and Michael Liben joins his wife Leora as a Guest. Frank Jaworski also joins the show as a Guest. Together they describe their experiences as they traveled through Budapest together. You'll see how these four friends visited Budapest, Hungary and learned about what happened to the Jews in Hungary, how the country fared during World War II and how they acknowledge what happened in their past today.

Heart to Heart with Michael
Living with a Culture of Grief

Heart to Heart with Michael

Play Episode Listen Later Nov 27, 2018 29:31


In this episode of "Heart to Heart with Michael" Anna Jaworski takes charge as the Guest Host and Michael Liben joins his wife Leora as a Guest. Frank Jaworski also joins the show as a Guest. Together they describe their experiences as they traveled through Budapest together. You'll see how these four friends visited Budapest, Hungary and learned about what happened to the Jews in Hungary, how the country fared during World War II and how they acknowledge what happened in their past today.

Heart to Heart with Anna
Michael & Jamie: An Interview with an Organ Recipient and a Donor’s Father

Heart to Heart with Anna

Play Episode Listen Later Jul 9, 2018 25:23 Transcription Available


In today's episode former Guests Jamie Alcroft and Michael Liben come on the program together to deliver a powerful portrayal of two sides of the organ donation coin -- with Jamie Alcroft we hear about what it means to be an organ donor recipient and with Michael Liben we discover what it means to be the family member of an organ donor whose life gave many other people hope. Tune in to hear Anna interview both of these inspiring men and during the final segment, you can hear the gentlemen even talk with one another about their experiences. Support the show (https://www.patreon.com/HearttoHeart)

Heart to Heart with Anna
Liel and her Many Gifts: A Family's Decision to Donate One Girl's Lungs, Kidneys, and more!

Heart to Heart with Anna

Play Episode Play 35 sec Highlight Listen Later Jun 25, 2018 28:51 Transcription Available


Michael Liben is the Host of "Heart to Heart with Michael" and he is also the bereaved father of Liel Liben. In today's program, Michael discusses with Host, Anna Jaworski, why he and his family decided to donate Liel's organs when she died. He talks about the religious ramifications, who benefited from her donations and why he feels so strongly about organ donation.Support the show (https://www.patreon.com/HearttoHeart)

Heart to Heart with Michael
Losing Loved Ones to a Misdiagnosis

Heart to Heart with Michael

Play Episode Listen Later Jul 6, 2017 30:01


Today's show features Jackie Renfrow and her mother, Wilodene Gist. These women have suffered losses to Long QT Syndrome including both of Jackie’s children. Tune in to hear how the cause of their deaths was finally diagnosed correctly and why they are such staunch advocates willing to talk with our Host, Michael Liben, about how this tragedy has affected their lives.

losing loved ones bereavement misdiagnosis long qt syndrome michael liben
Heart to Heart with Michael
Losing Loved Ones to a Misdiagnosis

Heart to Heart with Michael

Play Episode Listen Later Jul 6, 2017 30:01


Today's show features Jackie Renfrow and her mother, Wilodene Gist. These women have suffered losses to Long QT Syndrome including both of Jackie’s children. Tune in to hear how the cause of their deaths was finally diagnosed correctly and why they are such staunch advocates willing to talk with our Host, Michael Liben, about how this tragedy has affected their lives.

losing loved ones bereavement misdiagnosis long qt syndrome michael liben
Heart to Heart with Michael
Preparations for Life without Me

Heart to Heart with Michael

Play Episode Listen Later May 31, 2017 31:17


Today's program features Emily Perl Kingsley, the mother of a child born with Down Syndrome. Because of this experience, she wrote an essay, "Welcome to Holland" which has been made famous thanks to how beautifully it helps people understand a parent's journey when raising a child with special needs. Emily, a personal family friend of our Host, Michael Liben, shares her experiences with Michael about having a child with Down Syndrome, what path she chose to take to save her son and how she has helped him deal with loss. As Emily ages, and has lost two spouses, she has become aware of the need to prepare her son Jason for life without her. Today she tells Michael about the extraordinary efforts she has taken to help her son life when she is gone.

Heart to Heart with Michael
Preparations for Life without Me

Heart to Heart with Michael

Play Episode Listen Later May 31, 2017 31:17


Today's program features Emily Perl Kingsley, the mother of a child born with Down Syndrome. Because of this experience, she wrote an essay, "Welcome to Holland" which has been made famous thanks to how beautifully it helps people understand a parent's journey when raising a child with special needs. Emily, a personal family friend of our Host, Michael Liben, shares her experiences with Michael about having a child with Down Syndrome, what path she chose to take to save her son and how she has helped him deal with loss. As Emily ages, and has lost two spouses, she has become aware of the need to prepare her son Jason for life without her. Today she tells Michael about the extraordinary efforts she has taken to help her son life when she is gone.