Podcasts about hemiplegia

Hemiplegia to nie tylko osłabienie jednej strony ciała – to cały wachlarz wyzwań, które wpływają na rozwój dziecka i sposób prowadzenia terapii. Beata Wnuk, ekspertka w rehabilitacji dzieci z MPD, pomaga rozwiać wątpliwości i obalić mity związane z tą diagnozą.

Randomized Comparison Trial of Rehabilitation Very Early for Infants with Congenital HemiplegiaRoslyn N Boyd, Susan Greaves, Jenny Ziviani, Iona Novak, Nadia Badawi, Kerstin Pannek, Catherine Elliott, Margaret Wallen, Catherine Morgan, Jane Valentine, Lisa Findlay, Andrea Guzzetta, Koa Whittingham, Robert S Ware, Simona Fiori, Nathalie L Maitre, Jill Heathcock, Kimberley Scott, Ann-Christin Eliasson, Leanne SakzewskiPMID: 39477009 DOI: 10.1016/j.jpeds.2024.114381Free articleAbstractObjective: To compare efficacy of constraint-induced movement therapy (Baby-CIMT) with bimanual therapy (Baby-BIM) in infants at high risk of unilateral cerebral palsy.Study design: This was a single-blind, randomized-comparison-trial that had the following inclusion criteria: (1) asymmetric brain lesion (2) absent fidgety General Movements, (3) Hammersmith Infant Neurological Examination below cerebral palsy cut-points, (4) entry at 3-9 months of corrected age, and (5) greater than 3-point difference between hands on Hand Assessment Infants (HAI). Infants were randomized to Baby-CIMT or Baby-BIM, which comprised 6-9 months of home-based intervention. Daily dose varied from 20 to 40 minutes according to age (total 70-89.2 hours). Primary outcome measure was the HAI after intervention, with secondary outcomes Mini-Assisting Hand Assessment and Bayley III cognition at 24 months of corrected age.Results: In total, 96 infants (51 male, 52 right hemiplegia) born median at 37-weeks of gestation were randomized to Baby-CIMT (n = 46) or Baby-BIM (n = 50) and commenced intervention at a mean 6.5 (SD 1.6) months corrected age. There were no between group differences immediately after intervention on HAI (mean difference MD 0.98 HAI units, 95% CI 0.94-2.91; P = .31). Both groups demonstrated significant clinically important improvements from baseline to after intervention (Baby-BIM MD 3.48, 95% CI 2.09-4.87; Baby-CIMT MD 4.42, 95% CI 3.07-5.77). At 24 months, 64 infants were diagnosed with unilateral cerebral palsy (35 Baby-CIMT, 29 Baby-BIM). Infants who entered the study between 3 and 6 months of corrected age had greater change in HAI Both Hands Sum Score compared with those who entered at ≥6 months of corrected age (MD 7.17, 95% CI 2.93-11.41, P = .001).Conclusions: Baby-CIMT was not superior to Baby-BIM, and both interventions improved hand development. Infants commencing intervention at greater than 6 months corrected age had greater improvements in hand function.https://pubmed.ncbi.nlm.nih.gov/39477009/

Spastic hemiplegia is a very common subtype of cerebral palsy (CP), and CP itself is the most common cause of childhood-onset physical disability. An estimated 17 million people worldwide have CP. Spastic hemiplegia is also known as unilateral spastic CP or, simply, unilateral CP. Spastic hemiplegia affects the upper and lower limbs of one side of the body. The upper limb is usually more affected than the lower limb. This practical guide addresses spastic hemiplegia across the lifespan and the evidence-based, best-practice treatments. It also includes the lived experience of families. The writing of Spastic Hemiplegia was led by Marcie Ward, MD, Pediatric Rehabilitation Medicine Physician at Gillette Children's, a world-renowned center of excellence for the treatment of brain, bone, and movement conditions.   The book is available here: https://www.mackeith.co.uk/book/spastic-hemiplegia-unilateral-cerebral-palsy/   Follow DMCN on Podbean for more: https://dmcn.podbean.com/ ___ Watch DMCN Podcasts on YouTube: https://bit.ly/2ONCYiC __ DMCN Journal: Developmental Medicine & Child Neurology (DMCN) has defined the field of paediatric neurology and childhood-onset neurodisability for over 60 years. DMCN disseminates the latest clinical research results globally to enhance the care and improve the lives of disabled children and their families. DMCN Journal - https://onlinelibrary.wiley.com/journal/14698749 ___ Find us on Twitter! @mackeithpress - https://twitter.com/mackeithpress

Do you need to both entertain and form your children in the faith? In this episode of the Parousia Podcast, Charbel Raish talks with Anthony Salame (stand-up comic, actor and radio-host) about his latest venture into Catholic children's books. The Messiah's Donkey - https://store.parousiamedia.com/the-messiahs-donkey-anthony-salame-paperback/ 'J' is for Jesus - https://store.parousiamedia.com/j-is-for-jesus-anthony-salame-paperback/ St Charbel heals Nohad El Shami from Hemiplegia: https://saintcharbel.net.au/miracles/... ------------------------------ Join the Parousia mailing list at https://www.parousiamedia.com/mailing... Parousia is committed to proclaiming the fullness of truth! If you wish to help us in our mission with a donation please visit our website here https://www.parousiamedia.com/donate/ to learn ways that you can contribute.

This week we will discuss both Meningioma & Hemiplegia.  ​Our guest today is Marjorie Turner Hollman, a freelance writer/ editor who loves the outdoors, uses hiking poles to help keep her balance on the trail, and has completed four books in the Easy Walks guide book series. Her latest book, My Liturgy of Easy Walks, is a memoir, meditations on learning to live with a changed life. A native Floridian, she came north for college and snow! She has appeared on Boston's ABC news show, Chronicle; Boston's CBS Channel 4; the Boston Globe; local radio and cable TV shows; and been published in local, regional, and national publications.  A meningioma is just one of the more than 120 types of tumors that can occur in the brain. Meningiomas occur when cells from the membrane covering the brain and spinal cord (called the meninges) grow and multiply out of control. These primary tumors are different from metastatic brain tumors, in which cancerous cells travel from other sites, such as the breast or lung, to the brain. Meningiomas usually occur in people aged 40 to 70 and are more common in women than men. About 3% of people over age 60 develop meningioma. ​Meningiomas fall into three general types: benign, atypical and malignant. About 85-90% of meningiomas are truly benign, although they may grow inside the head and cause problems by pressing on the brain. Atypical meningiomas are more difficult to eliminate by surgery alone and may recur locally after treatment. Malignant meningiomas, while uncommon, behave like a cancer and can spread directly into the brain, causing serious neurologic symptoms. (credits: Rosewell Park Cancer Center) ​Unfortunately for Marjorie, the surgery to remove the life-threatening mass growing in her brain caused paralysis to her right side.  She knew before going into surgery she might not survive the 12 hour operation.  What she didn't know, was there was the risk of paralysis.  Her story is one of strength and determination as she took her new condition to task and started helping others with mobility difficulties have a better understanding of accessible hiking trails on the East Coast.   Marjorie Turner Hollman Finding Easy Walks Wherever You Are Freelance Writer/Author/Editor www.marjorieturner.com marjorie@marjorieturner.com https://www.amazon.com/author/marjorieturnerhollman  

Ever since he was a young boy, Paul Pritchard has been fascinated with climbing rocks. His compulsion took a terrible and beautiful turn on a matchstick of rock that sticks out of the Southern Ocean in Tasmania

Ever since he was a boy, Paul Pritchard has been fascinated with climbing rocks. His compulsion took a terrible and beautiful turn on a matchstick of rock that sticks out of the Southern Ocean in Tasmania

Shaelyn is recovering from Hemiplegia after a carotid artery dissection at 17 years old created a clot that caused an ischemic stroke. The post Hemiplegia Recovery – Shaelyn Poisson appeared first on Recovery After Stroke.

I had the pleasure of chatting with Patrick DeCrescenzo. Patrick is an adaptive snowboarder who is currently in training to try out for the 2022 Paralympics. He is diagnosed with left Hemiplegia.

In this episode we will discuss how to localise the anatomical site of lesion in a patient presenting with hemiplegia. For notes and images of the episode visit our website  http://www.neurologyteachingclub.comFollow us onInstagram- https://www.instagram.com/neurologyteachingclub/Facebook https://www.facebook.com/neurologyteachingclubTwitter-     https://twitter.com/ClubTeachingYoutube-  https://www.youtube.com/channel/UCD3ePKNlpwnatM98VY_q2Pg/featuredPinterest-  http://www.pinterest.com/neurologyteachingclubTumblr-       https://www.tumblr.com/blog/neurologyteachingclub  

Cerebral palsy is a group of disorders that affect movement and muscle tone or posture. It's caused by damage that occurs to the immature brain as it develops, most often before birth.   Our guest today is Zain Bando, a Chicago area, 21-year-old college student and is studying journalism at the University of Illinois at Urbana-Champaign as a junior. He hopes to pursue a career in broadcasting after graduation and currently resides in Downers Grove, IL with his family.   TRANSCRIPT:   S8E2 Cerebral palsy Lita T  00:08 Hello, and welcome to another episode of podcast dx, the show that brings you interviews with people just like you, whose lives were forever changed by a medical diagnosis. I'm Lita Ron  00:20 And I'm Ron. Jean  00:21 And I'm Jean Marie. Lita T  00:22 Collectively, we're the host of podcast dx. On today's show. We're speaking with Zain about cerebral palsy. Good morning, Zain. And could you tell us a little bit about yourself? Zain  00:32 Sure. So, um, good morning. My name is Zain Bando And I am a 21 year old college student who's currently studying journalism at the University of Illinois in Champaign. And  after graduation, um I hope to pursue a career in, in broadcasting or as a writer for a sports team. I don't know, I don't know what sports team that would be at. But it's something that I've always been interested in. And it's just a passion that I've always had, and I'm very glad to be pursuing it. So thank you again, for having me on today. I really appreciate it. And sorry, my, my pronunciation is actually "Zain", I know, I know that there's I in my name, but it actually isn't for now, literally. So if you think of the word "van", that's how my name is pronounced. Lita T  01:18 We will take that that I out, thank you very much. Ron  01:22 Yeah I don't know. We appreciate that. Zain. Can you send us out by actually telling us and our listeners what actually is? cerebral palsy? Zain  01:33 Sure, so that's a great question. So according to the Mayo Clinic, cerebral palsy is a group of disorders that affect muscle control, movement, muscle tone, or posture, by injury or malformation, which occurs to the brain as it develops more often before birth during the birthing process, or just after birth. There are two main forms of CP, continental and acquired. Lita T  01:58 Right, right that I've got also in the Center for Disease Control here in the United States. That the risk factors for cerebral palsy, and I'm going to abbreviate it as CP is that it's important to know the risk factors. Some of the risk factors for congenital CP are a low birth weight. So children who weigh less than five and a half pounds at birth, or that's 2500 grams, and especially those who weigh less than three pounds at birth, so that's about 1500 grams, they have a greater chance of having CP, a child that is prematurely born. And that's children that are born before the 37th week of pregnancy, and especially if they're born before the 32nd week of pregnancy, they have a higher chance of having CP intensive care for premature infants has improved a lot over the past several decades. And babies that are born very early are more likely to live now. But many have medical problems that can put them at risk for CP. Another risk factor is multiple births, twins, triplets, and other multiple births have a higher risk for CP, especially if a baby's twin or triplet dies before birth, or shortly after birth. I don't know why that would be but that's what they're saying. some but not all of this increased risk is due to the fact that children born from multiple pregnancies are often born early or with low birth weight, or both children that are conceived with artificial reproductive technology, abbreviated as ART in fertility treatments. Those pregnancies that result have a higher risk of CP. Most of the increased risk is explained by preterm delivery or multiple births or both. And both preterm delivery and multiple births are increased with children conceived with ART infertility treatments. Another risk would be infections that the mother might get during pregnancy infections can lead to increased certain proteins called Cytokines and that circulates in the brain and the blood of the baby during pregnancy. Cytokines cause inflammation, which can lead to brain damage in the baby. A fever in the mother during pregnancy or delivery can also cause this problem. Some types of infections that have been linked to CP include viruses such as chicken pox, rubella, German, which is also German measles, and also Sue-to Jean  04:50 Cytomegalovirus Lita T  04:52 Oh cytomegalovirus Thank you, Jean. And bacterial infections such as infections of the placenta or fetal membranes, And maternal pelvic infec, infections can cause it. jaundice or Jean? Jean  05:09 Nope, I don't know this one. Lita T  05:10 Okay, Ron, Ron  05:12 What are you looking at me for? Jean  05:15 Zain, Lita T  05:16 (laughter) Zain? Karen neck care neck and neck terrorists? Okay, Zain  05:21 I would see. I would say it's um Kernic Esrest, but I'm not sure Jean  05:26  That sounds good. Lita T  05:27 That sounds good. Ron  05:28 That's what we're going with today Lita T  05:29 We're going to go with that  KernicTetris is the yellow color scene in the skin of many newborns. jaundice happens when a chemical called bilirubin builds in the baby's blood. When too much of this bilirubin builds up in the baby's blood the skin in the whites of the eyes might look yellow. This yellow coloring is called jaundice. And when severe jaundice goes untreated for too long, it can cause their condition that Zain pronounced properly and it can cause CP and other conditions. By the way, that condition is spelled k e r n i c. t e r us,  Kernest.. Ron  06:07 I'm going to go with Kerner, Nick terus Lita T  06:10 Kernicterus, Jean  06:11 We're going to have a link on our... Lita T  06:13 Website Jean  06:13 Yes, yeah, Lita T  06:14 That's the best way to go sometimes Kernicterus results from Abo and Rh blood type differences between the mother and the baby. This causes the red blood cells in the baby to break down too fast resulting in severe jaundice. medical conditions of the mother, such as mothers with thyroid problems, intellectual disability, or seizures have a slightly higher risk of having a child with CP, and other birth complications such as detachment of the placenta, a uterine rupture, or problems with the umbilical cord during birth, can disrupt oxygen supply to the baby, and result in CP. Zain  06:55 Well, while that's all true, a small percentage of CP is caused by brain damage that occurs more than 28 days after birth. This is called the acquired CP and usually associated with infection, such as meningitis and head injury, or a problem with blood flow to the brain. cerebral vascular accidents for example, stroke or or bleeding in the brain associated with the blood clotting problem, blood vessels that didn't form properly, or heart defect that was present at birth or sickle cell disease, Jean  07:28 Zain, what are some of the symptoms for cerebral palsy? Zain  07:33 Sure, so because this condition begins to show signs and symptoms at a very early age, and individuals, parents or health care providers typically notice the signs and symptoms of cerebral palsy. The symptoms and effects of cerebral palsy vary depending on the location and extent of the injury to the brain, your child might normal intelligence or have learning difficulties or learning difficulties, your child might have mild difficulties with movement or be unable to control their limbs, despite the variations in symptoms of certain effects are common among people with cerebral palsy. Ron  08:07 Wouldn't you say that it's kind of like a spectrum from mild to severe? Right? Zain  08:12 Absolutely. 100 100%. Right. There's definitely there's definitely a spectrum. Ron  08:18 Yeah, the CD says I'm sorry, the CDC says that in many cases, the cause or causes of congenital CP aren't fully known, which means that currently little can be done to prevent it. CP related to genetics is not preventable. But can acquired CP be prevented? And Zain  08:41 It's a very good, it's a very good question. While there are actions people can take before and during pregnancy, as well as after birth, that might, excuse me, that might help reduce the risk of develop, of developmental problems, including CP, taking steps to help ensure a healthy pregnancy and to help prevent development. developmental problems, including CP acquired CP is often related to infection, or injury, and some of those cases can be prevented, but again, as as it stated, some of those cases just simply are impossible Ron  09:21  Right Zain  09:21 And cannot and cannot be prevented, so Ron  09:24  Right, right. Jean  09:26 Thank you. before pregnancy, it's a good idea to be as healthy as possible. I think that's what a lot of people strive for. And make sure that any infections that you might have are treated in any healthcare conditions that you might have like diabetes are under control. And ideally, they should be under control before you. You will conceive if if  assistive reproductive technology or ART infertility treatments are being used to get pregnant, consider ways to reduce the chance of multiple pregnancies, twins, triplets, or more. I think some people think Up to like 1213 children at a time, such as transferring only one embryo at a time. And then having multiple pregnancies. It's also important to get vaccinated for certain diseases as Lita had mentioned, such as the chicken pox or rubella. And that could, those if you should contract those illnesses while  pregnant, that could be harmful to the developing baby. It's also important to have many of these vaccinations before you become pregnant. And as we've learned Also, before you have an organ transplant, or any of those things as well, for undertaking any major life changes, Lita T  10:38 Right. And during pregnancy, you should have early and regular prenatal care, both for your health and for the end of your developing baby. You should wash your hands often with soap and water to help reduce the risk of infections that might cause harm to your developing baby. Contact your health care provider if you get sick, have a fever or have other signs of infection during pregnancy. a flu shot is your best protection in our in our opinion, against serious illness from the flu, or flu shot can protect pregnant women and their unborn babies, both before and after birth. flu shots have not been shown to cause harm to pregnant women or their babies. If there is a difference in the blood type, or the Rh in compatibility between the mother and the baby, like we said it can cause jaundice and Kernicterus. I'm not going to get that one Ron  11:32 (laughter) Jean  11:32 Nope  We'll hear about that later. Lita T  11:34 Yep, women should know their blood type and talk to their doctor about ways to prevent problems. And also you should talk to your doctor about ways to prevent problems if you are at risk for preterm delivery, such as if you have multiple embryos. Research has shown that taking magnesium sulfate before anticipated early preterm birth reduces the risk of CP among surviving infants. Zain  12:00 And in addition to that, it also leaves reducing risks after the baby's born, because any baby can get jaun jaundice severe jaundice that is not treated, can cause brain damage. Just like the mom before pregnancy makes sure your child has vaccines against infections that can cause meningitis. And with it, we'll see if I can get this one, um encephalitis   Buckling their child in the car. Buckling their child in the car using an infant or child car seat, booster seat or seat belt according to the child's height, weight and age. Again, this is just our opinion of recommendations that should be done. Make living area safe. Make living areas safer for children by using window guards. Keep young children from falling from falling out of open windows and using safety gates at the top and bottom of stairs. Make sure make sure the surface of your child's playground is made of a shock absorbing material such as hardwood mulch or sand, carefully watching children at the time. At all times are in bathtubs swimming or wading pools, and natural bodies of water that should that should just go for any young child in general disability or not. Adults watching kids in the water should avoid distracting activities like using a computer or a mobile device reading or taking or talking on the phone. Talking on the phone might be the most dangerous one, in my opinion. Jean  12:24 Yep right on Yeah, Zain  12:52 Make sure your child wears a helmet. For activities like riding a bike. That's an obvious one. And of course, never hit, throw, shake or hurt a child. I know the sound like common sense things, but some young mothers may not know how dangerous life is for a very young child.  That's right. Great advice  Zain. As a matter of fact, I just heard on the news that they they are trying to reach out to very young mothers mothers that really don't have perhaps a mentor. They might be on their own. They don't have the the background and those type of mothers. They just might not have all of these tools at their disposal. So hopefully this episode will help them Jean  14:14 Yeah, not everyone's been you know babysitting. Yeah, Lita T  14:17 Yeah. Great. Zain. What treatments are available for somebody that's been diagnosed with CP ? Zain  14:24 For sure, um, There are medications that can help with the muscle spasticity. In July of this year, the FDA has approved an expanded use of Dysport to treat upper and lower limbs spasticity which I actually did not know about, including that caused by CP for patients as young as two years and older. Overtime, CP might cause problems with muscles, bones and joints in your child might need surgery to address these issues or concerns. Ron  14:54 Right Right, Zain. What tips do you have for someone whose child has recently been diagnosed with CP Zain  15:01 um while there's still an ongoing education process to be have to be had just from my own personal experience, I would not recommend panicking. If you can find the right resources available to parents out there today. them from when I was born 21 years ago that I think that's key just because the world is evolved so much in that time. I see having a trustworthy doctor and focusing on the things that the child can do is a key to begin a positive outlook on life. For sure. Ron  15:32  Right. Lita T  15:33 That's great advice. And what would you What have you found to be the most common misconception about CP? Zain  15:42 I've noticed that a lot of people think that the people were born with CP are born exactly the same way. So I would say every person is born with it. So I would say the biggest misconception that people have is every person born with it as the same journey of life. While in actuality, people want to live with the condition and focus on the things they can control. Ron  16:05 I like this kid. Lita T  16:07 He's got a good he's got a good future ahead of him Ron  16:10 Got a good outlook. Yeah, I mean, that's exactly we focus on what we can do not what is difficult or what we can't do. Lita T  16:16 Right. Ron  16:16  So I love the way you view that. Your outlook, Zain, um, how about your friends and family? What kind of role have they played in your life? And do you have any other support systems that you found to be helpful? Zain  16:30 Yes, um thankfully, I have a good support system, both from friends and family. They've been extremely supportive in all my endeavors. Anything for me, scuba diving over a decade ago to participating in athletics as a social media manager in high school, or for the football and basketball teams, they've always been there. I also think that surrounding yourself with positive people will only make life more fun. And I've also recognized that focusing on your inner self motivation, working out meditation, any of those things, is also a good way to reset and focus on your whole self too. Because at the end of the day, what's inside you, in my opinion is most important. So Jean  17:13 That's, that's fantastic. And I have a question. You're a Downers Grove North grad. Is that correct? Zain  17:19 I sure I sure am absolutely. Jean  17:22 We have three my my Lita's three grandsons all went to Downers Grove north too so you guys are all in good company.  all, Alumns. Yes, all Alumns, I have a question. So what first interested you in journalism? And then what drew you specifically to sports journalism? Because I hear we actually read some of your some of your articles for Downers Grove North? And I'm just curious what first inspired that? Do you have like a favorite journalist? Zain  17:49 Sure. So um, I mean, when I was in high school, I knew I wanted to do something. um in sports. Because um in middle school, I had been a public address announcer for the middle school basketball teams. And I knew I wanted to do something similar in high school, because of course, I can't physically play organized athletics. And when I was a junior in high school, I took a intro to journalism class. And thankfully, the teacher who's actually the current head softball coach, there was really big into sports and kind of drew me into the entire industry, Jean  18:26  Okay, Zain  18:27  And I took in all and I took in all the knowledge, and I just knew  that's the path I wanted to pursue myself on. And, you know, thankfully, I was able to be given all these wonderful opportunities, and I owe a lot to him and, and of course, I owe a lot to, to my head coaches, that I was able to help out as a manager for varsity football, varsity basketball my final two years there, and you know that North's a place that's always going to be it's always going to be with me for a very long time. And I'm always going to consider Downers Grove home. So it's been a it's been a wonderful experience and a very, very good question. Lita T  19:05 That's great. Yeah, I have another follow up. I'm sorry. Ron  19:09 And I have a follow up your follow up. Jean  19:10  (laughter) Lita T  19:10 Ok alright Ron  19:11 (laughter) Jean  19:11 And then I have a follow up Lita T  19:12 Alright Zain, You got us going here. Do you have a podcast yet? Zain  19:17 Um, I did a very long time ago. At the moment. I have one right now. It's called Sports. Talk From A to Z. It's a podcast with me and my college roommate. Um, you can find it on YouTube by searching Sports Talk From A to Z, we talk about everything from sports, to social justice issues to things that we don't like with commissioners. It's pretty it's pretty interesting. Ron  19:42 (Laughter) Sorry to laugh. Zain  19:45 Yeah, we have. There's a lot there's a lot packed into it. We have about like 17 episodes or so. Lita T  19:51 That's great. Zain  19:52 We took a break for we took a break from it for a little bit. We're hoping it start it up again in the next couple weeks. Because of we really like doing it. And then I'm also a freelance writer for Insider.com I cover Illini-athletics and mixed martial arts. So if anything from the UFC Bellator and numerous other MMA organizations, I write about them as well. So I'm around, kind of in a couple of different media spaces, and I'm pretty easy to reach to. And we'll get to that near the end of the episode. Lita T  20:24 Right, right, right, I just, you're just the way you're carrying the way you're carrying us through this episode. I wish you were running our pockets. (laughter) Ron  20:33 I told you I like this kid. Lita T  20:34 Ohhhh Ron  20:35 So, you know what, I'm gonna probably show some of my ignorance over here. You're from Downers Grove. And we are basically in the Chicago region. I'm not a huge follower of follower of the White Sox. But I do know that the Chicago White Sox baseball team has an announcer that has CP I don't recall the gentleman's name, but have you ever reached out to him for any advice? Zain  21:01 It's a very good question, as his name is Jason Benetti. He's a wonderful announcer. Unfortunately, I've tried reaching out to him multiple times. But um, you guys may not know this. He's a very, very busy person. Not only does he do White Sox baseball, he does college football and during his, big time college basketball games, through the winter months. I've tried a couple of times, things just haven't worked out. But I'm very hopeful that we can cross paths. And some day because he does have the same disability. I do. And he does tremendous work. And he's just somebody that I think a lot of people in the sports industry should continue to work up to, because he's going to be either the next generation of people that are going to be coming through the pipeline. So thank you again, for for mentioning that. Yes. I'm very well aware of who Jason Benetti is. Ron  21:53 Okay. Cool. Cool. Cool. Cool. Jean  21:54 And then I have another question. He had several questions. I try to limit it. Sorry. Ron  21:58 (laughter) Um, he's like, are these people done yet? Jean  22:01 Um, so Zain, what is it been like, at the university with COVID? And everything? And how is learning changed? Zain  22:09 Um, I mean, it's been interesting. I actually decided to stay home for the semester because of COVID. But I think overall, the university has done a tremendous job with the revolutionary saliva test, they've been able to make it through the entire semester. And I'm looking forward to going back in the spring and just seeing what a COVID semester is going to be like, because I think we're going to be with this virus for a little bit. And, yeah, I think, I think it's just one of those things that where we kind of all have to get through it and stay positive and again, like, kind of the theme of this episode has been, we need to control what we can control at this point. And yeah, absolutely. Ron  22:48 Okay. Speaking of control, I'm going to take control the mics right now I'm gonna cut off Jean and Lita, we're gonna wrap this up. And we do appreciate your time. But one thing I did want to talk about, I think somebody earlier mentioned something about water, or Dive or Dive Heart. But I know, you've been with an organization called Dive Heart that does scuba diving for children, adults and veterans with disabilities. But is it more than just jumping in the water or breathing underwater, does it? How much more does that affect you doing that sport? Zain  23:31 Well, I mean, that's a great, that's a great question. First off, they've always been in tremendous organization. They, they, they gave me You know, they give people opportunities where they don't feel like they have kind of an avenue to go through. And that's one of the things that I felt when I was younger when I did it. So the freedom of movement underwater is one of the most satisfying things you could ever have. I think scuba is less about the act of getting underwater, and feeling relaxed, and more about all the prep stuff, the teamwork, the communication associated with being able to work with a group of experienced divers being able to learn all the different equipment and kind of what the kind of what the rules and regulations are and just being with people who are going to be there that are going to be able to support you as you kind of feel the freedom underneath underneath the water. And for some it's an exhilarating feeling because when they're out of the water they don't they either they either don't feel that movement or sensation or it's very difficult for them. So that's something that's something that I've noticed, just simply doing the sport and being a part of it for for as long as I was. Ron  24:50 That's great. That's absolutely great. Thank you. Thanks so much for that. Jean  24:54 And Zain. How can our listeners learn more about you, um, you were talking about how you have a you know, there's a Spots Talk From A to Z on YouTube. Do you have any other social media accounts? Zain  25:06 Oh yeah, you can find me everywhere on all the major social media platforms from our Instagram, Twitter and Snapchat, or my handle was @ZainBando99 that's  Z A I N B A N D O nine, nine. You can follow me on all of those. My DMS are always open. If anyone would like to talk, I'm always active via all those all the time. I'm actually a huge social media junkie so you can find me uhh you can find me anywhere. Jean  25:36 So I want to put them in charge of the podcast. (laughter) Yeah. And, and our social media. Yes. Ron  25:41 And my archery website. Lita T  25:42  Right, right. Right, we're gonna get you going, Jean  25:44 You're gonna be busier than, than Jason, Lita T  25:47 Thank you. Thank you so much for joining us today's Zain we really appreciate it. Zain  25:52 Oh, you're welcome. Thank you guys for having me on. Again. I was really happy that we were able to do this. And you go, I think you guys will continue. And you are continuing to do a good job of giving another platform for people to listen to before they can go out and make their own make their own decisions on what's best for them medically. So kudos to you guys for that and thank you again, you guys did a tremendous job and kept me entertained the whole time so thank you Lita T  26:20 (laughter) Ron  26:20 We're nothing if not entertaining. Lita T  26:21  Oh yeah. We don't charge extra. If you have any questions or comments related to today's show, you could drop us a line at podcast dx@yahoo.com through our website, podcast dx.com and Facebook, Twitter, Pinterest or Instagram. Ron  26:38 And if you have a moment to spare, please give us a five star review wherever you get your podcast. As always, please keep in mind that this podcast is not intended to be a substitute for professional medical advice, diagnosis or treatment. Always seek the advice of your physician or other qualified health care provider with any questions you may have regarding a medical condition or treatment, and before undertaking a new health care regime, and never disregard professional medical advice, or delaine. Taking it because of something you've heard on this podcast Jean  27:09 Till next week.

Today I bantered with Paul Rankin. He thinks he's nothing special. I think he's quite the opposite. Born with Cerebral Palsy, Paul is an engineer, a pilot, a lifesaver, a musician and as of this year qualified at national level for diving... Not national level for parasport, but for fully able bodied athletes. What. A. #^$%ing. Legend. No 'poor me' No 'life's hard' No excuses. Paul just gets on with life and lives a damn good one at that! Cerebral Palsy is the most common form of childhood physical disability, affecting about 34,000 Australians. Bet you didn't know that... Well, I didn't. In fact, there is a lot I didn't know about it. It's a condition that ranges from purely physical disabilities right through to intellectual. It is not degenerative, yet it is permanent. Paul has a type called Hemiplegia, where one side of his body is affected. As you will learn throughout our chat Paul is extremely intelligent and just gets on with life. I bloody love his attitude and found so many gold nuggets that people can take out of listening to him share his story. Most of us can't even (and don't) imagine what it is like to live life with disabilities. To realise how many things we take for granted that aren't available to or are made so much more challenging for people with physical or intellectual limitations. I loved this chat. You will too. Enjoy! Tiffanee Cook | www.rollwiththepunches.com.au | @rollwiththepunches_podcast | @tiffaneeandco EPISODE SPONSOR: SiteKee | www.sitekee.com.au --- Send in a voice message: https://anchor.fm/roll-withthepunches/message

ABOUT MARA YALEWebsite: www.marayale.comFacebook Page: www.facebook.com/yalemaramInstagram: @maramyaleBlog: www.marazoemia.netABOUT REGAME-VR LAB AT NORTHEASTERN UNIVERSITYResearch in the Rehabilitation Games and Virtual Reality Laboratory at Northeastern University focuses on the sustainable, evidence-based integration of virtual reality (VR) and active video games into rehabilitation practice for children with neuromotor impairments such as cerebral palsy. Website: www.web.northeastern.edu/regamevrlabFacebook: www.facebook.com/regamevrlabTwitter:@regamevr  Audio from ReGame-VR lab interviews produced by Benjamin Bertsch and Adam Fischer.LINKS FROM INTERVIEW I-ACQUIRE: www.nihstrokenet.org/i-acquire/family-resourcesI-ACQUIRE clinical trial for constraint induced movement therapy: www.clinicaltrials.gov/ct2/show/NCT03910075Cerebral Palsy Soccer: www.cpsoccer.usHand in Hand Parenting: www.handinhandparenting.orgThe Reading Promise: www.makeareadingpromise.comDr. Karen Pape: www.karenpapemd.comChildren's Hemiplegia and Stroke Association (CHASA): www.chasa.orgInternational Alliance for Pediatric Stroke: www.iapediatricstroke.orgSheryl Field, Field Center for Integrated Development: www.thefieldcenter.orgFeldenkrais: www.feldenkrais.comSomatic Experiencing: www.traumahealing.org/about-us

Who Ponzi-ed before Ponzi?  Are you a real artists if you are a 'scam' artist?In this episode Karen and Stephanie talk so fast that they mispronounce words like "month" and "ten"Scamtime Jingle: Paul Morgan-Donald https://paulmorgandonald.com/Scamtime Art: Stephanie WolfeThings to help this episode make more sense:Hemiplegia is a condition caused by brain damage or spinal cord injury that leads to paralysis on one side of the body. It causes weakness, problems with muscle control, and muscle stiffness.Look at Adele Spitzeder!https://en.wikipedia.org/wiki/Adele_Spitzeder#/media/File:Adele_Spitzeder_-_Die_Gartenlaube.jpgDollar-Cost AveragingWith dollar-cost averaging, you commit to buying a fixed dollar amount of a specific investment, like a stock or mutual fund, at regular intervals, regardless of the share price at the time of purchase. With this approach, you wind up buying more shares when prices are low and fewer shares when prices are high.Acrylic vs Oil Painthttps://mymodernmet.com/acrylic-vs-oil-paint/#:~:text=One%20of%20the%20biggest%20differences,Oil%20paints%20dry%20slowly.&text=Because%20they%20are%20so%20malleable,other%20hand%2C%20dry%20very%20quickly.ART BY OUR PALS!!Bruce Horakhttp://www.brucehorak.com/Jason Carterhttp://www.jasoncarter.caMaria Pace-Wyntershttps://www.mariapacewynters.com/original-paintingsGarry Reimerhttp://garryreimer-fineart.com/about

Jessica Cudmore had a stroke in her early 30s. Due to her age the medical professionals who treated her exacerbated her condition because they didn't allow themselves to assess or believe that she had a stroke. I learn that there are a lot of pitfalls in the medical system in Canada. Jessica is the owner of a production company called Branch Monster Productions. Find Jessica on IG @branch_monster YT: www.youtube.com/funnymela IG: @melashea1 Snap: @melashea19 Twitter: @melashea FB: www.facebook.com/melashea Www.standuppsychic.com www.patreon.com/standuppsychic (NSFW)

Hemiplegia is defined as paralysis on one side of the body caused by brain damage, while hemi- paresis is weakness or partial paralysis on one side of the body caused by brain damage, usually opposite the site of the cerebral vascular accident (CVA) or other brain injury (Woodsen, 2008, p. 1002). Certain impairments are associated with lesions in a particular hemisphere. For ex- ample, left CVA may cause right hemiparesis, aphasia or other communication deficits, and/or apraxia or motor planning deficits. Right CVA may result in left hemiparesis, visual field deficits or spatial neglect, poor insight and judgment, and/or impulsive behavior. This focuses on articles that discuss topics in relation to hemiplegia or hemiparesis. The topics most discussed are grip or grasp strength and force, reaching, shoulder pain, and bilateral movement. Other topics discussed include biofeedback, botulinum toxin A, constraint- induced movement therapy, contractures, fine-motor control, functional electrical stimulation, haptic training, neuroprosthesis training, physical fitness, postural stabilization, virtual reality, weight bearing, and wheelchair use.

To contact the Paralympic Soccer team: email: extndedNT@ussoccer.org Twitter: @4Ssharp @ussoccer_PNT https://www.ussoccer.com/teams/paralympic-national-team The United States Men's Para 7 aside (Paralympic) National Soccer Team represents the United States in international competitions. It is operated by the United States Soccer Federation. The team finished seventh at the 2015 IPCPF World Championships. They have competed at several Paralympic Games, including the 1984, 1992, 1996, 2004 and 2012 editions. One of their best finishes was in 1996 when they finished fourth. Their Head Coach is Stuart Sharp. Comedian Josh Blue is one of their former players. The U.S. Para 7 aside National Soccer Team (USPNT) is an elite level program that selects players from across the United States in preparation for International standard competition. The National Team, in addition to friendly matches and invitational tournaments, competes in the following events: Intercontinental Cup, Copa America, World Championships, Parapan American Games, Paralympic Games. For players to be eligible, they must be ambulant (no requirement for assistive walking aids) and have one of the following neurological conditions, have had a Stroke, have Cerebral Palsy, have had a Traumatic Brain Injury / Acquired Brain Injury. Individuals with the above conditions may display varying degrees of the following impairments: Diplegia, Hemiplegia, Triplegia, Quadriplegia, Monoplegia, Dystonia, Athetosis, Ataxia, Balance issues, Co-ordination issues, Weakness in certain areas of the body. In many cases the above conditions may result in only minimal levels of motor dysfunction (some not noticeable to the untrained eye); however, under the rules of the sport, this could still make players eligible for the U.S. Paralympic National Team. "Football 7-a-side" is the standard term for the game informally known as "C.P. Football," and international tournaments are hosted by the International Paralympic Committee, FIFA, or International Federation of CP Football IFCPF. Team selection and tournaments are competitive, and tend to be run like professional sport organizations. The USA team trains at the Olympic Training Center at Chula Vista, California, and the Home Depot Center at Carson, California.

Patrick DeCrescenzo is 20 years old and is from Brooklyn, New York. He suffered a stroke at birth with left him with a condition called Hemiplegia, which is the paralysis of one side of the body. Growing up he always wanted to be an athlete and throughout school learned that because of his condition that he would have to find the right sport for him. One day he started snowboarding and he fell in love with it. In the episode Patrick shares his journey which is full of ups and downs. He just fell short of qualifying for the 2018 Paralympic games and is now on a journey to qualify for the 2022 Paralympic Games.

Multiple world record holder and international gold medal para swimmer—Brock Whiston is taking her sport to new heights. 22-year-old Brock was born with Hemiplegia, although this was not diagnosed till she was 17. Hemiplegia causes weakness down one side of her body, but she never let this get her down and indeed proved a talented swimmer amongst non-disabled competitors when she was younger. When she became aware she was eligible for para swimming she tore up the record books in her breakthrough years of 2018 & 2019. Brock is an incredible sporting talent and a wonderful young lady too. Not only is she training hard with her eyes firmly set on the success at the summer Paralympics next year in Tokyo, but she spends much of her time giving back—teaching children with additional needs to swim and going into schools to inspire the next generation to be the best possible version of themselves. I for one will be cheering Brock on next year as I’m sure she is destined for glory.  “I said to everybody – I don’t want to be treated differently. I’m the same person. I worked hard to where I am today, it wasn’t just luck. It was hard work and commitment.” 4:42 Para swimming has a wide variety of classifications – S1 to S10 – they range from very disabled and limited movements, and then S10 is least disabled. S11 to S13 is visually impaired athletes, and S14 is learning difficulties. Brock is S8 which means two limbs of her body are affected. Brock wasn’t diagnosed until she was sixteen years old. She was called lazy by her teachers and doctors – she didn’t get help in school. Hemiplegia not only affects her body but also her ability to take in information, reading in particular.   “I think sometimes where disabilities get mixed up—just because you’ve got a disability doesn’t mean you’re not able to do things—you just do everything a different way.” 17:51 Brock started swimming when she was just six years old and was instantly enamored with it not only as a recreation, but a sport. She continued to swim while in school as it was something she knew she could do without asking help and without her teachers looking down at her. She had a wonderful coach who ended up chatting with an Olympic para swimmer, who went on to encourage Brock to go and get a full diagnosis. Finally after being diagnosed, she buckled down into para swimming qualified for the World Para Swimming Series in Berlin—the site where she would go on to break her first world record. 33:20 Brock has gone on to break more records at the World Para Swimming Championships in London this September and take home six gold medals. Next on her list is to qualify for the Tokyo Paralympics where she undoubtedly has her sights set on more gold and world records. Brock is participating in the IDDP Project where any disabled persons can come to the pool for free and get instruction and swim. While she is still in the middle of her career, Brock sees herself continuing in the sport for the rest of her life through coaching and teaching swimming to others who are just like her, and very much just like you as well.   Links Brock Whiston Profile Twitter Support this podcast

Kat's joined this week by guest co-host Kim Hoffman, and #1 fan of “the Dylan show,” Stephanie Hamper. Stephanie supports the podcast on Patreon—the subscription being a Valentine's Day gift from her husband; swoon—and identifies as a Cindy. Stay tuned after the outro if you want to hear about toothbrush pyramid schemes from a dental professional. In addition to being passionate about Mel Silver's representation as Beverly Hills, 90210's resident oral surgeon, Stephanie is a mom who wants to spread the word about pediatric stroke. Learn more, and consider making a donation to support the Children's Hemiplegia and Stroke Association, in honor of Stephanie's daughter Sarah. Also discussed in this episode, the infamous VMA pairing of Milton Berle and RuPaul. Support the show on Patreon or by shopping through our Amazon link Rate & review us on Apple Podcasts, Stitcher, Spotify Follow us on Twitter, Instagram, Facebook

This book is about Wendy's journey with a child with brain cancer and a resulting physical disability - hemiplegia. The book is written from her perspective as the mother of a child who was diagnosed with a brain tumour at age three. Our daughter, Victoria underwent eight and half hours of surgery for a partial resection of the tumour, and then eighteen months later the tumour grew again requiring fifteen months of weekly chemotherapy treatment at John Hunter Hospital. The book, ‘Victoria Grace – living with victory through childhood cancer,’ includes both Wendy’s story and practical information for families in similar situations or people who have been struggling with traumatic on-going life circumstances. The book includes information such as how to set up your home when you have a child receiving chemotherapy treatment; caring for the carer – coping with depression; being creative with strategies for physical therapy; helping siblings understand and process grief; and an example information pack I gave to our daughter’s school teachers to assist them to understand what was happening. Throughout the book there is the underlying theme of persistent faith and relying on God’s strength to get us through the tough times in life. One of the charities that greatly helped Wendy and her family on this journey is Redkite. Redkite is an Australian cancer charity providing essential support to children and young people (0-24 years) with cancer, and the family and support network who care for them. One of the Redkite Senior Social workers wrote the following review of my book. “This book is a very helpful guide for parents who gather strength through their religion in times of severe challenge to assist them to maintain hope and sustain the energy needed to manage the treatment journey. It may also be helpful to those who might struggle with their faith during these times – particularly with relevant quotations from psalms. “For those parents who prefer to find other ways to assist in staying strong, this book is full of lists of practical suggestions and plans which will save time and energy – both usually very scarce for most families. Wendy also lists the support resources available to all families to support their children through brain cancer both through the text and in all appendices at the end of the book based on her own lived experience (including the mention of Redkite’s telegroup program which is how I came to know her). Support strategies for siblings and for the the child with cancer are there too. “Victoria Grace” is also a very well written story of human strength and resilience – I couldn’t put it down even though I knew the story. Thank you Wendy for providing so much meaningful assistance to other parents, extended family and support networks!” Linda Brown, Senior Social Worker – Redkite To find out more please visit https://wendyrobinson.com.au

This book is about Wendy's journey with a child with brain cancer and a resulting physical disability - hemiplegia. The book is written from her perspective as the mother of a child who was diagnosed with a brain tumour at age three. Our daughter, Victoria underwent eight and half hours of surgery for a partial resection of the tumour, and then eighteen months later the tumour grew again requiring fifteen months of weekly chemotherapy treatment at John Hunter Hospital. The book, ‘Victoria Grace – living with victory through childhood cancer,’ includes both Wendy’s story and practical information for families in similar situations or people who have been struggling with traumatic on-going life circumstances. The book includes information such as how to set up your home when you have a child receiving chemotherapy treatment; caring for the carer – coping with depression; being creative with strategies for physical therapy; helping siblings understand and process grief; and an example information pack I gave to our daughter’s school teachers to assist them to understand what was happening. Throughout the book there is the underlying theme of persistent faith and relying on God’s strength to get us through the tough times in life. One of the charities that greatly helped Wendy and her family on this journey is Redkite. Redkite is an Australian cancer charity providing essential support to children and young people (0-24 years) with cancer, and the family and support network who care for them. One of the Redkite Senior Social workers wrote the following review of my book. “This book is a very helpful guide for parents who gather strength through their religion in times of severe challenge to assist them to maintain hope and sustain the energy needed to manage the treatment journey. It may also be helpful to those who might struggle with their faith during these times – particularly with relevant quotations from psalms. “For those parents who prefer to find other ways to assist in staying strong, this book is full of lists of practical suggestions and plans which will save time and energy – both usually very scarce for most families. Wendy also lists the support resources available to all families to support their children through brain cancer both through the text and in all appendices at the end of the book based on her own lived experience (including the mention of Redkite’s telegroup program which is how I came to know her). Support strategies for siblings and for the the child with cancer are there too. “Victoria Grace” is also a very well written story of human strength and resilience – I couldn’t put it down even though I knew the story. Thank you Wendy for providing so much meaningful assistance to other parents, extended family and support networks!” Linda Brown, Senior Social Worker – Redkite To find out more please visit https://wendyrobinson.com.au

Meet Gene Andrasco. Gene and his wife Kelley are the proud parents of 2 children, 18 year-old Ryan and 17 year-old Kiley who has been diagnosed with Alternating Hemiplegia of Childhood, or AHC. In this Special Fathers' Network Podcast, we'll hear the Andrasco family story, how they've dealt with Kiley's rare neurological disorder and how they've tried to help other people who have the same disorder.That's all on this edition of the Special Fathers Network Podcast. To find out more go to spreaker.com/show/the-special-fathers-network-podcast

It's now over a decade since the human genome was first sequenced, costing over a billion pounds and taking 13 years. Today, we're close to the thousand dollar genome. But what's in a genome, and what can it tell us about our risk of disease? Plus we'll be arguing the age of polar bears, and finding out about fish with skin cancer. And our gene of the month is one for the Trekkies out there - it's Tribbles. Like this podcast? Please help us by supporting the Naked Scientists