Wisdom Shared with Carole Blueweiss

Episode SummaryIn this episode, actor and voiceover artist Miguel Gabriel shares his journey from struggling with impaired speech to finding his voice, literally and creatively. Thoughtful and grounded beyond his years, Miguel opens up about overcoming bullying, staying true to himself, and how kindness—his self-described superpower—has shaped his path. His reflections on rejection, faith, and friendship offer wisdom that resonates at any age.About MiguelMiguel Gabriel, an American actor of Spanish-Filipino and Hungarian descent, has been captivating audiences since he began his career in theater at the tender age of five. After a series of successful appearances in popular shows like "How to Get Away with Murder" and lending his voice to animated films like "Puss in Boots: The Last Wish," Miguel has made an exciting leap into his first feature film, "Camera." In this pivotal role as Oscar, he stars alongside Hollywood royalty, Beau Bridges, marking a significant milestone in his acting journey.From This EpisodeWatch Camera: https://linktr.ee/camerathemovieRelated episode of Wisdom Shared: Blessed With Support with Miguel's mom, MicheleRelated episode of Wisdom Shared: Finding Voice Through a Camera with filmmaker Jay SilvermanMiguel's Instagram: @officialmiguelgabrielMiguel's IMDB page Find and Follow Carole and Wisdom Shared:https://www.caroleblueweiss.com/Subscribe to YouTube channelFollow and send a message on FacebookFollow and send a message on LinkedInFollow on InstagramFollow on TikTokFollow on ThreadsThe Wisdom Shared TeamAudio Engineering by Steve Heatherington of Good Podcasting WorksCo-Producer and Marketing Coordinator: Kayla NelsonProduction Assistant: Becki Leigh

Episode SummaryIn this episode, Michele Uriarte-Beards shares her journey as the mother of actor and voiceover artist Miguel Gabriel. When Miguel showed early signs of speech and movement challenges, Michele navigated the uncertainties of finding the right support. Facing resistance—even from within her own family—she remained determined to help her son thrive. In addition to exploring various therapies, she found unexpected help in the theatre community, which not only provided Miguel with a creative outlet but also set him on a path to a professional acting career. Michele also reflects on Miguel's experience with bullying—how those who once bullied him ultimately became his bodyguards. It's a powerful parallel to his journey from struggling with speech to becoming a successful voiceover actor. From This EpisodeWatch Camera: https://linktr.ee/camerathemovieRelated episode of Wisdom Shared: Finding Voice Through a Camera with filmmaker Jay SilvermanMiguel's Instagram: @officialmiguelgabrielMiguel's IMDB page Find and Follow Carole and Wisdom Shared:https://www.caroleblueweiss.com/Subscribe to YouTube channelFollow and send a message on FacebookFollow and send a message on LinkedInFollow on InstagramFollow on TikTokFollow on ThreadsThe Wisdom Shared TeamAudio Engineering by Steve Heatherington of Good Podcasting WorksCo-Producer and Marketing Coordinator: Kayla NelsonProduction Assistant: Becki Leigh

Episode SummaryThis is a replay of a recent episode because February is American Heart Month. Craig and Karey Packard share their inspiring story about facing an unexpected health crisis that forever changed their lives. They recount how the life-saving power of CPR played a critical role in a miraculous outcome. Their story is one of faith and resilience and a good reminder of the power of preparation in the event of the unexpected. About Craig & Karey PackardCraig and Karey Packard live in Londonderry, NH.  They have been married for 36 years and have 4 children and 2 grandchildren.  Craig did his undergraduate work at Tufts University, completed medical school at the Uniformed Services University of the Health Sciences, and later added a Masters in Public Health from Harvard. He served as a doctor in the US Air Force for 26 years before retiring from the military in 2011 after which he worked in the Occupational Medicine field for an additional 10 years before fully retiring. He was board-certified in Family Medicine, Aerospace Medicine, and Occupational Medicine.Karey graduated from Clarion State College with a degree in accounting after which she received an Associates degree in paralegal studies at George Washington University. She had to leave the workforce when their oldest son was diagnosed with leukemia and with the frequent military moves, she never returned to the paid workforce.  Among her numerous volunteer roles, she has worked for the American Heart Association as an advocate for CPR training and heart health for the past decade.From This EpisodeWhat is Cardiomyopathy?“Miracle Girl” Recovers from “Non-Survivable” EventFind CPR Training near youAmerican Heart Month Find and Follow Carole and Wisdom Shared:https://www.caroleblueweiss.com/Subscribe to YouTube channelFollow and send a message on FacebookFollow and send a message on LinkedInFollow on InstagramFollow on TikTokFollow on ThreadsThe Wisdom Shared TeamAudio Engineering by Steve Heatherington of Good Podcasting WorksCo-Producer and Marketing Coordinator: Kayla NelsonProduction Assistant: Becki Leigh

In light of the news that the FDA is banning Red No. 3 due to health concerns, we're replaying this popular episode from last season that discusses the impact of food dyes on behavior.Join us in a touching conversation with Amy and her daughter Lizzie as they share their experiences with 18-year-old Mathew, who was diagnosed with autism. Amy discusses the challenges of raising Mathew, including how eliminating certain food dyes helped reduce his aggressive behavior. Lizzie shares insights on being an older sister to a sibling with autism, highlighting the unique bond they share. This episode offers a candid look into a family's journey with autism, filled with challenges, love, and resilience.For the visually-minded who prefer to listen and read or for those who need closed captioning, watch the transcript video here: https://youtu.be/NLxFbGl-0vYResourcesDye-Free Kids Facebook GroupHidden Talents ABAMarcus.orgFood Color and Autism: A Meta-AnalysisAutism Spectrum Disorder: What Every Parent Needs to Know bookThe Impact of Artificial Food Dyes on Autism & ADHDContact Amy: atgnichols@gmail.com Find and Follow Carole and Wisdom Shared:https://www.caroleblueweiss.com/Subscribe to YouTube channelFollow and send a message on FacebookFollow and send a message on LinkedInFollow on InstagramFollow on TikTokFollow on ThreadsThe Wisdom Shared TeamAudio Engineering by Steve Heatherington of Good Podcasting WorksCo-Producer and Marketing Coordinator: Kayla NelsonProduction Assistant: Becki Leigh

Episode SummaryDays for Girls is an organization empowering communities worldwide through menstrual health education and resources. Today, I'm thrilled to welcome the founder of Days for Girls, Celeste Mergens, along with her husband, Don. This episode dives deeper than just menstrual equity and the work of DfG. We discuss Celeste's memoir, The Power of Days, which chronicles her inspiring journey—from growing up in poverty and overcoming abuse to leading a global movement. They also open up about Celeste's rare hereditary movement disorder that affects her and four of her grandchildren.About Celeste MergensCeleste Mergens is an author, thought leader, and changemaker and has been featured in Oprah's O Magazine, Forbes, and Stanford Social Innovation Review. She is the Founder of Days for Girls, a global award-winning organization championing Women's Health and Menstrual Health Equity. Days for Girls was named by the Huffington Post as a ‘Next Ten' Organization poised to change the world in the next decade and has reached more than 3 million women and girls in 145 countries.Typically averaging dozens of speaking events a year, Celeste is a sought-after professional speaker and consultant. She was awarded the AARP Purpose Prize, Conscious Company Global Impact Entrepreneur Top Ten Women, 2019 Global Washington Global Hero, and Women's Economic Forum's Woman of the Decade.CelesteMergens.comCeleste's Book The Power of DaysFrom This Episodehttps://www.daysforgirls.org/The DfG Pad and KitNYC Chapter of Days For Girls - Sign up for Monthly Volunteer SessionsNYC Chapter of Days For Girls InstagramDonate to the NYC Chapter of Days For GirlsGet Involved with Days for GirlsThe Shame That Keeps Millions of Girls Out of School - NYT article by Nicholas KristofAbout familial paroxysmal nonkinesigenic dyskinesiahttps://www.risegatherings.com Find and Follow Carole and Wisdom Shared:https://www.caroleblueweiss.com/Subscribe to YouTube channelFollow and send a message on FacebookFollow and send a message on LinkedInFollow on InstagramFollow on TikTokFollow on ThreadsThe Wisdom Shared TeamAudio Engineering by Steve Heatherington of Good Podcasting WorksCo-Producer and Marketing Coordinator: Kayla NelsonProduction Assistant: Becki Leigh

Episode SummaryCraig and Karey Packard share their inspiring story about facing an unexpected health crisis that forever changed their lives. They recount how the life-saving power of CPR played a critical role in a miraculous outcome. Their story is one of faith and resilience and a good reminder of the power of preparation in the event of the unexpected. About Craig & Karey PackardCraig and Karey Packard live in Londonderry, NH.  They have been married for 36 years and have 4 children and 2 grandchildren.  Craig did his undergraduate work at Tufts University, completed medical school at the Uniformed Services University of the Health Sciences, and later added a Masters in Public Health from Harvard. He served as a doctor in the US Air Force for 26 years before retiring from the military in 2011 after which he worked in the Occupational Medicine field for an additional 10 years before fully retiring. He was board-certified in Family Medicine, Aerospace Medicine, and Occupational Medicine.Karey graduated from Clarion State College with a degree in accounting after which she received an Associates degree in paralegal studies at George Washington University. She had to leave the workforce when their oldest son was diagnosed with leukemia and with the frequent military moves, she never returned to the paid workforce.  Among her numerous volunteer roles, she has worked for the American Heart Association as an advocate for CPR training and heart health for the past decade.From This EpisodeWhat is Cardiomyopathy?“Miracle Girl” Recovers from “Non-Survivable” EventFind CPR Training near you    Find and Follow Carole and Wisdom Shared:https://www.caroleblueweiss.com/Subscribe to YouTube channelFollow and send a message on FacebookFollow and send a message on LinkedInFollow on InstagramFollow on TikTokFollow on ThreadsThe Wisdom Shared TeamAudio Engineering by Steve Heatherington of Good Podcasting WorksCo-Producer and Marketing Coordinator: Kayla NelsonProduction Assistant: Becki Leigh

Episode SummaryIn this bonus episode, you will hear Erica DeMarch interview me on her Balance Matters podcast. We not only discuss my TEDx talk Your Socks May Hold the Key to Aging Better.  We also dive deep into the themes of the talk—exploring what else I would have shared if given more than 10 minutes to speak. In addition, we discuss the importance of body awareness in balance training along with exploring methods that can help with awareness through movement, like the Feldenkrais Method and yoga - powerful tools for improving balance and preventing falls. About Erica and Balance MattersErica DeMarch, founder of Step and Connect and inventor of Balance Matters, interviews leaders in medicine, health, and wellness to give you up-to-date information re: balance tips, resources, and exercises to implement in your practice.Erica's website: www.stepandconnect.comThe Balance Matters podcast: https://balancematters.buzzsprout.com/From This EpisodeMy TEDx talkhttps://feldenkrais.com/https://feldenkraisproject.com/https://www.anatbanielmethod.com/Effects of the Feldenkrais Method as a Physiotherapy Tool: A Systematic Review and Meta-Analysis of Randomized Controlled Trials - PubMed nlm.nih.goThe Empowering Effect of Embodied Awareness Practice on Body Structural Map and Sensorimotor Activity: The Case of Feldenkrais Method - PubMed nlm.nih.govEffects of Feldenkrais exercises on balance, mobility, balance confidence, and gait performance in community-dwelling adults age 65 and older - PubMed nlm.nih.gov Find and Follow Carole and Wisdom Shared:https://www.caroleblueweiss.com/Subscribe to YouTube channelFollow and send a message on FacebookFollow and send a message on LinkedInFollow on InstagramFollow on TikTokFollow on ThreadsThe Wisdom Shared TeamAudio Engineering by Steve Heatherington of Good Podcasting WorksCo-Producer and Marketing Coordinator: Kayla NelsonProduction Assistant: Becki Leigh

Episode SummarySheila Nevins, a prominent documentary filmmaker and best-selling author, discusses her experiences with her son's Tourette syndrome and speaks about the broader themes of aging, disability, and authenticity. Through personal stories and reflections, she sheds light on often misunderstood topics, emphasizing the importance of genuine representation over sensationalism. With humor and candor, Sheila shares her journey of seeking answers and navigating the complexities of life. Her commitment to storytelling is marked by a willingness to confront uncomfortable truths, making for a compelling and insightful conversation. Sheila shares a wealth of wisdom for us all.About Sheila NevinsSheila Nevins is an American television producer and former head of MTV Documentary Films division of MTV Entertainment Studios. Previously, Nevins was the President of HBO Documentary Films. She has produced over 1,000 documentary films for HBO and is one of the most influential people in documentary filmmaking. She has worked on productions that have been recognized with 35 News and Documentary Emmy Awards, 42 Peabody Awards, and 26 Academy Awards. Nevins has won 31 individual Primetime Emmy Awards, more than any other person. The film, I Have Tourette's but Tourette's Doen't Have Me, won an Emmy.Sheila's IMDB pageFrom This EpisodeTourette Association of AmericaWatch I Have Tourette's but Tourette's Doesn't Have MeYou Don't Look Your Age...and Other Fairy Tales (I recommend the audiobook!)National Institute of Mental HealthFive Things You May Not Know About Tourette Syndrome Find and Follow Carole and Wisdom Shared:https://www.caroleblueweiss.com/Subscribe to YouTube channelFollow and send a message on FacebookFollow and send a message on LinkedInFollow on InstagramFollow on TikTokFollow on ThreadsThe Wisdom Shared TeamAudio Engineering by Steve Heatherington of Good Podcasting WorksCo-Producer and Marketing Coordinator: Kayla NelsonProduction Assistant: Becki Leigh

Episode SummaryIn this episode, I talk with Jay Silverman, an award-winning filmmaker known for his emotionally resonant work. Jay discusses his journey into feature filmmaking, which began with "Girl on the Edge", a deeply personal film inspired by his daughter's recovery through equine therapy. His latest film, "Camera", is another heartfelt project influenced by his experiences as a father of a daughter with impaired speech. Jay shares how his work has become a vehicle for expressing the lessons and wisdom he's gained from these personal experiences, driven by a passion to touch others through his storytelling.About Jay SilvermanFor over 40 years, Jay Silverman has excelled as a leading Director, Producer, and Photographer specializing in award-winning films, television, digital, and print campaigns.Jay's narrative films have been awarded numerous Best Feature and Audience Awards at festivals across the country.  His current dramatic feature "Camera", stars Golden Globe, Emmy, and Grammy Award Winner Beau Bridges, Jessica Parker Kennedy, Scotty Tovar, Bruce Davison, and Miguel Gabriel.  It will be released on Amazon and iTunes on July 23rd, 2024.  His first was the multi-award-winning dramatic feature “Girl on the Edge”, starring Peter Coyote, Taylor Spreitler, Mackenzie Phillips, Elizabeth Peňa, Gil Bellows, Rex Lee, Amy Davidson, and Amy Price Francis that premiered on Showtime. His second is the charming romantic comedy “Off the Menu” starring Dania Ramirez, Tony Award Winner Santino Fontana, Makenzie Moss, and Maria Conchita Alonso, which premiered on HBO & Amazon. His third is the true story drama “Saving Paradise” starring William Moseley, Johnna Braddy, Mary Pat Gleason, Bill Cobbs, Paul Dooley, and James Eckhouse currently on Tubi and Amazon.Jay Silverman Productions: Jay Silverman Production's mission is to use the power of storytelling to inspire and entertain with a message that is uplifting for society.  As an independently owned and operated entertainment production company that develops and produces independent films and television shows, we believe we have an important responsibility to use storytelling to make the world a better place.Watch Camera: https://linktr.ee/camerathemovieFrom This EpisodeWatch Camera: https://linktr.ee/camerathemovieI Used to Be Famous Dave HoldenCinema ParadisoGirl on the EdgeSaving ParadiseBethany CerronaYale  Find and Follow Carole and Wisdom Shared:https://www.caroleblueweiss.com/Subscribe to YouTube channelFollow and send a message on FacebookFollow and send a message on LinkedInFollow on InstagramFollow on TikTokFollow on ThreadsThe Wisdom Shared TeamAudio Engineering by Steve Heatherington of Good Podcasting WorksCo-Producer and Marketing Coordinator: Kayla NelsonProduction Assistant: Becki Leigh

Episode SummaryNoah, my ATV guide in Alaska, joins me on this episode of Wisdom Shared.  Last season, we heard from Noah's mom, Melissa, who talked about her sobriety journey.  In this discussion, Noah courageously shares his difficult journey with pills. He nearly died. He offers advice, hope, and solidarity to others facing similar struggles. His powerful narrative underscores the transformative power of sharing personal experiences in the hopes of helping others. ResourcesNational Harm Reduction Coalitionhttps://www.cdc.gov/opioids/basics/fentanyl.html: https://www.cdc.gov/drugoverdose/prevention/index.htmlFentanyl Test StripsFind Narcan Near YouIf you or someone you know is struggling with substance use disorder, SAMHSA's (Substance Abuse and Mental Health Services Administration) National Helpline, 1-800-662-HELP (4357), (also known as the Treatment Referral Routing Service) or TTY: 1-800-487-4889 is a confidential, free, 24-hour-a-day, 365-day-a-year, information service, in English and Spanish, for individuals and family members facing mental and/or substance use disorders. This service provides referrals to local treatment facilities, support groups, and community-based organizations. Callers can also order free publications and other information. You can also visit https://www.samhsa.gov. Related Episodes of Wisdom SharedAddiction to Sobriety: A Mother's Journey: Noah's mom shares her own addiction storyAnonymous SisterOverdose Awareness: A Sister's TributeRetired FBI Agent Reflects On Opioid Crisis Find and Follow Carole and Wisdom Shared:https://www.caroleblueweiss.com/Subscribe to YouTube channelFollow and send a message on FacebookFollow and send a message on LinkedInFollow on InstagramFollow on TikTokFollow on ThreadsThe Wisdom Shared TeamAudio Engineering by Steve Heatherington of Good Podcasting WorksCo-Producer and Marketing Coordinator: Kayla NelsonProduction Assistant: Becki Leigh

Episode Summary Sharon "Rocky" Roggio is my special guest - the producer and director of the award-winning documentary "1946: The Mistranslation that Shifted Culture." This film explores the profound impact of a mistaken biblical translation of the word "homosexual" and its consequences on culture, religion, and the LGBTQ community. Rocky shares her personal journey as a Christian lesbian, discussing her efforts to seek acceptance and understanding from her father, a church pastor. Through these conversations, listeners gain insight into Rocky's experiences and the broader implications of this pivotal mistranslation.About Sharon "Rocky" Roggio1946's director, Sharon “Rocky” Roggio is no stranger to the implications of a life completely affected by the predominant modern interpretations of the Bible. Growing up lesbian in a Christian household, with a pastor for a father, has prepared her for this expansive undertaking. Rocky's experience, of anti-gay biblical teachings, has been incredibly traumatic. She is a strong voice, among the growing chorus of LGBTQIA+ Christians who want to cure the world of this damaging narrative. Once Roggio learned of Kathy and Ed's work, she was compelled to tell this story. This film is part of her attempts to reconcile a relationship with her family and begin to heal.Sharon “Rocky” Roggio  is an multi award-winning film producer and director living in Los Angeles, CA. She has been a member of three IATSE unions nationwide and has a Bachelor's degree in Communications with a focus in Radio, Television and Film Her background includes large budget physical production on award winning shows and films such as House of Cards, Parks and Recreation, With Bob and David, Whip It and Red Dawn.   In 2016, Roggio associate produced and production designed GOOK, a feature film that premiered at Sundance in 2017 and Won the Audience Award in the Next Category.   In 2018 when she heard about the 1946 mistranslation in the Bible, Roggio immediately quit all her other endeavors and has focused all her time, money, and resources on producing and creating this documentary. 1946 is Roggio's directorial debut.About 1946: The Mistranslation that Shifted Culture1946: The Mistranslation That Shifted Culture is a feature documentary that follows the story of tireless researchers who trace the origins of the anti-gay movement among Christians to a grave mistranslation of the Bible in 1946. It chronicles the discovery of never-before-seen archives at Yale University which unveil astonishing new revelations, and casts significant doubt on any biblical basis for LGBTQIA+ prejudice. Featuring commentary from prominent scholars as well as opposing pastors, including the personal stories of the film's creators, 1946 is at once challenging, enlightening, and inspiring.  Watch the trailer.Watch the full feature film today.https://www.1946themovie.com/1946 Roadtrip Across America - We are THRILLED to announce our plan to utilize the award-winning documentary, 1946: The Mistranslation That Shifted Culture, as a tool for civic engagement and to drive voter registration for the 2024 election. Our mission is to organize 14 free public conferences in US cities impacted by extremist ideologies. The primary objective of these assemblies is to activate the audience to vote as we advocate for the rights of the LGBTQIA+ community, standing up for democracy and promoting equality for everyone. We will discuss the power of civic engagement to stop evangelical and legislative domination and provide people with a sustainable narrative of compassion founded on research, history, and facts.  AND - We will SHOW THE FILM - followed by a Q&A with the filmmakers and director Sharon Roggio! From This EpisodeKathy Baldock CanyonWalkerConnections.comJill Woodward, documentary editorJena Surbu, Writer/ProducerThe Reformation ProjectDavid Fearon Find and Follow Carole and Wisdom Shared:https://www.caroleblueweiss.com/Subscribe to YouTube channelFollow and send a message on FacebookFollow and send a message on LinkedInFollow on InstagramFollow on TikTokFollow on ThreadsThe Wisdom Shared TeamAudio Engineering by Steve Heatherington of Good Podcasting WorksCo-Producer and Marketing Coordinator: Kayla NelsonProduction Assistant: Becki Leigh

Episode SummaryIn this conversation with filmmaker and self-described Renaissance Man Stewart Schulman, we discuss his multifaceted career and his collaborations with John Bayless, highlighting projects like One Hand One Heart and the award-winning feature documentary Left Alone Rhapsody: The Musical Memoir of Pianist John Bayless. Schulman shares  Bayless' life from childhood illness and genius piano playing at age four to Julliard as Leonard Bernstein's protege; from his Baptist upbringing to conversion to Judaism; and from playing the piano around the world as a Steinway then Yamaha artist with two hands to his re-invented life post-stroke re-learning to play the piano with his non-dominant left hand.  Stewart's stories about his life and the filmmaking process are delightfully accented by John's music and one-man show, One Hand One Heart.  I hope this episode (and John Bayless episode!) inspires you to see the fabulous film, Left Alone Rhapsody.About Stewart SchulmanI love stories. Watching them.  Telling them. They're journeys that open our minds—our hearts—and show us new ways of thinking.  I aim for my work to be entertaining and socially relevant—challenging perceptions and inspiring ‘change'.  It's how we grow.  People I work with have called me a “Renaissance Man”—because I've explored many different creative mediums to broaden my skills as a writer, director and producer. They also tell me I bring an even-keeled temperament to the table, keep my work environments professional and enjoyable, and get the job done right.    Contact me with questions.  I look forward to working with you in the future.  https://www.stewartschulman.com/Act Two MediaWorksFrom This EpisodeLeft Alone Rhapsody: The Musical Memoir of Pianist John BaylessWatch the trailer for Left Alone Rhapsody.Watch at Reel Abilities Film Festival in New York City on April 4th, with a live performance by John Bayless on April 8th Free Tickets HereWatch at the Sarasota Film Festival on April 10th Tickets HereWatch at the Jewish Film Festival of Pittsburgh on May 2nd, with a live performance by John Bayless Tickets HereWatch the Long Island Premiere on May 9th at the Jeanne Rimsky Theater , with a live performance by John BaylessJohn Bayless – One Hand One Heart: My Life & My Music This new ‘one-man-one-hand only' play—with music by Gershwin, Bernstein, Puccini, Mancini, Rachmaninoff, Rodgers, Legrand and the world-renowned concert pianist, John Bayless, himself—takes audiences on the journey of John's remarkable life. John talks openly about his highs and lows, and his determination to create a second act for himself as an artist.The play begins with a 4-year-old John becoming a musical prodigy in his hometown of Borger, Texas, which sets him on a life-long adventure and a 30-year career as a concert pianist, which is suddenly halted by a debilitating stroke. John shares the "hell" he faced, post-stroke, trying desperately to journey back to life  to be an artist in a new way. His spiritual awakening led him to his unbelievable comeback, concertizing with his left hand all alone!  This inspiring one-man show evokes laughter and tears, showcasing John's astonishing musicianship, as he shares his amazing life-story.Music featured in the episode:That's It! composed by John Bayless  with Robert Freedman, featured in One Hand One HeartWinter Tableau  composed by John Bayless, used in collaboration with choreographer Heidi LatskyRhapsody in Blue by George Gershwin, reimagined for one hand by John BaylessHeidi Latsky Dance Find and Follow Carole and Wisdom Shared:https://www.caroleblueweiss.com/Subscribe to my YouTube channelFollow me and send me a message on FacebookFollow me and send me a message on LinkedInFollow me on InstagramFollow me on TikTokFollow me on ThreadsThe Wisdom Shared TeamAudio Engineering by Steve Heatherington of Good Podcasting WorksCo-Producer and Marketing Coordinator: Kayla NelsonProduction Assistant: Becki Leigh

Episode SummaryMy special guest for this episode is pianist John Bayless, whose story is featured in the incredible documentary Left Alone Rhapsody: The Musical Memoir of Pianist John Bayless. In our conversation, John reflects on life before and after his stroke.  Post-stroke, John's resilience shines through as he embarks on a remarkable path of self-recovery and discovery. Teaching himself to play with just his left hand, he defied the odds and embraced a new chapter. John's story and music  make this episode a must-listen, just as the documentary is a must-watch.About John BaylessJohn Bayless is an internationally renowned concert pianist, composer, improviser, and prolific recording artist.  A protégé of Leonard Bernstein and a Yamaha artist, John is a crossover artist known for how he blends classical training and piano technique with popular music in imaginative improvisations. Despite a debilitating stroke halting his illustrious 30-year career, John refused to surrender. Instead, he embarked on a second act, teaching himself to play with just his left hand. This story is brilliantly shared in Stewart Schulman's documentary Left Alone Rhapsody: The Musical Memoir of Pianist John Bayless. From This EpisodeLeft Alone Rhapsody: The Musical Memoir of Pianist John BaylessWatch the trailer for Left Alone Rhapsody.Watch at Reel Abilities Film Festival in New York City on April 4th, with a live performance by John Bayless on April 8th Free Tickets HereWatch at the Sarasota Film Festival on April 10th Tickets HereWatch at the Jewish Film Festival of Pittsburgh on May 2nd, with a live performance by John Bayless Tickets HereWatch the Long Island Premiere on May 9th at the Jeanne Rimsky Theater , with a live performance by John BaylessThe John Bayless Fund for Brain ResearchYamaha's DisklavierMusic featured in the episode:Circle of Life, from the album "Circle of Life: The Music of Elton John in the Style of Bach"Goodbye Yellow Brick Road,  from the album "Circle of Life: The Music of Elton John in the Style of Bach"  Find and Follow Carole and Wisdom Shared:https://www.caroleblueweiss.com/Subscribe to my YouTube channelFollow me and send me a message on FacebookFollow me and send me a message on LinkedInFollow me on InstagramFollow me on TikTokFollow me on ThreadsThe Wisdom Shared TeamAudio Engineering by Steve Heatherington of Good Podcasting WorksProduction Assistant and Marketing Coordinator: Kayla NelsonProduction Assistant: Becki Leigh

Episode SummaryIn this poignant episode, Jacob Moench shares the challenges and joys of parenting his son Samuel, who has epilepsy and autism. The episode explores how Jacob and his wife support each other and prioritize time for their other children. Jacob also talks about his company, which offers genetic testing for preventative illness, and we discuss the ethical considerations surrounding the use of DNA analysis for family planning. Despite the challenges, Jacob reflects on the profound impact Samuel has had on their lives, considering him an enormous blessing. This episode offers  a powerful exploration of the unique challenges and love that characterize Jacob's journey as a parent of a child with special needs.About Jacob MoenchJacob Moench is an entrepreneur in the medical industry devoted to preventative genetic testing.  He is a devoted husband to his wife of 12 years.  He and his wife have four beautiful children, including their oldest, Samuel, who has Autism and Epilepsy. Jacob enjoys playing with his children, basketball, hiking, piano, cooking, and creative writing.Jacob's blog: https://fathertospecialneeds.blogspot.com/Jacob's business: https://physiogenomic.com/Contact JacobFrom This EpisodeFinding Cooper's VoiceForever Boy: A Mother's Memoir of Autism and Finding JoyMark Rober's Video about his autistic sonSteele's Army - Facebook page  of an epilepsy family that Jacob recommends Find and Follow Carole and Wisdom Shared:https://www.caroleblueweiss.com/Subscribe to my YouTube channelFollow me and send me a message on FacebookFollow me and send me a message on LinkedInFollow me on InstagramFollow me on TikTokFollow me on ThreadsThe Wisdom Shared TeamAudio Engineering by Steve Heatherington of Good Podcasting WorksProduction Assistant and Marketing Coordinator: Kayla NelsonProduction Assistant: Becki Leigh

Episode SummaryIn this episode, Lynn Greenberg and her son Jonathan, co-authors of Robby the Dyslexic Taxi and the Airport Adventure, share insights into Jon's journey with dyslexia. Emphasizing the transformative impact of education post-diagnosis, they discuss the power of creativity and the hidden gifts of neurodiversity. Jon, who views dyslexia as a superpower, aims, along with his mother, to inspire and empower neurodiverse children through their storytelling. This episode is a valuable resource for parents and teachers, offering insights and guidance for a more inclusive and understanding approach.For the visually-minded who prefer to listen and read or for those who need closed captioning, watch the transcript video on YouTube:  https://youtu.be/qYBVQJqdfo8From This EpisodeDefining terms:dyslexia, dyscalculia, dysgraphianeurodiversityThe Windward SchoolThe Orton Gillingham ApproachAbout Lynn and JonathanLynn Greenberg is the happiest wife, mom, and grandma. A very retired attorney who loves to cook, exercise, and read, she has seen how positivity with feelings and differences can allow children to grow into happy, productive adults. During COVID-19, when many families were living together with an abundance of unscheduled free time, Lynn and her son Jonathan, who has dyslexia, began to work on the concepts and ideas for Robby. As ideas developed, they became increasingly invested in the character, his story, and the impact this endeavor could have on others. Born with dyslexia, Jonathan Greenberg could not read and write like many other children his age. So, instead of giving in to frustration, Jonathan used his struggle as a catalyst for creativity, expressing his ideas through art. Having overcome his learning difficulty, Jonathan has fallen in love with reading. Robby the Dyslexic Taxi And The Airport Adventure exemplify Jonathan's passion for writing and illustration. Together with Lynn, his mother, and his writing partner, they are already thinking of other stories featuring neurodiverse characters that complement this book. Facebook: Creative Cab Co.Instagram: @creativecabcompanyWebsite: robbythetaxi.comBuy the Book:Robby the Dyslexic Taxi and the Airport Adventure on AmazonRobby the Dyslexic Taxi and the Airport Adventure on Bookshop.org Find and Follow Carole and Wisdom Shared:https://www.caroleblueweiss.com/Subscribe to my YouTube channel: https://www.youtube.com/@WisdomSharedCaroleBlueweissFollow me and send me a message on Facebook: https://www.facebook.com/caroleblueweissFollow me and send me a message on LinkedIn: https://www.linkedin.com/in/carole-blueweiss-pt-dpt-23970279/Follow me on Instagram: https://www.instagram.com/carole_blueweiss/The Wisdom Shared TeamAudio Engineering by Steve Heatherington of Good Podcasting WorksProduction Assistant and Marketing Coordinator: Kayla NelsonProduction Assistant: Becki Leigh

Episode SummaryJoin me as I welcome back Amy and her daughter, Lizzie, for an insightful discussion. In this episode, we delve into Lizzie's harrowing encounter with toxic shock syndrome (TSS), exploring the severe implications and her journey to recovery. Amy shares the critical moments that led to her life-saving discovery of Lizzie's condition and her quick response. We also discuss Lizzie's candid reflections on managing her menstrual health post-TSS, the challenges she faced during her recovery, and the significant changes in her life post-illness, including the recommendation to avoid tampon use. This episode serves as an eye-opener on the crucial aspects of TSS and menstrual health awareness.For the visually-minded who prefer to listen and read or for those who need closed captioning, watch the transcript video on YouTube: https://youtu.be/F_rYxdV3QwcResourcesWHAT YOU NEED TO KNOW ABOUT TOXIC SHOCK SYNDROMERemoving the shame and stigma from menstruation5 Things You Need to Know About Common Tampon IngredientsTHE TAMPON: A HISTORYSisters nearly die within days of each other after using 'super plus' tampons5 Tampon Myths You Should NOT Believehttps://www.twitch.tv/mamadoctorjonesDays for GirlsDays for GirlsDays for Girls Holiday Gift GuideDays for Girls NYC Chapter InstagramFind and Follow Carole and Wisdom Shared:https://www.caroleblueweiss.com/Subscribe to my YouTube channel: https://www.youtube.com/@WisdomSharedCaroleBlueweissFollow me and send me a message on Facebook: https://www.facebook.com/caroleblueweissFollow me and send me a message on LinkedIn: https://www.linkedin.com/in/carole-blueweiss-pt-dpt-23970279/Follow me on Instagram: https://www.instagram.com/carole_blueweiss/The Wisdom Shared TeamAudio Engineering by Steve Heatherington of Good Podcasting WorksProduction Assistant and Marketing Coordinator: Kayla Nelson

Episode SummaryJoin us in a touching conversation with Amy and her daughter Lizzie as they share their experiences with 18-year-old Mathew, who was diagnosed with autism. Amy discusses the challenges of raising Mathew, including how eliminating certain food dyes helped reduce his aggressive behavior. Lizzie shares insights on being an older sister to a sibling with autism, highlighting the unique bond they share. This episode offers a candid look into a family's journey with autism, filled with challenges, love, and resilience.For the visually-minded who prefer to listen and read or for those who need closed captioning, watch the transcript video here: https://youtu.be/NLxFbGl-0vYResourcesDye-Free Kids Facebook GroupHidden Talents ABAMarcus.orgFood Color and Autism: A Meta-AnalysisAutism Spectrum Disorder: What Every Parent Needs to Know bookThe Impact of Artificial Food Dyes on Autism & ADHDContact Amy: atgnichols@gmail.comFind and Follow Carole and Wisdom Shared:https://www.caroleblueweiss.com/Subscribe to my YouTube channel: https://www.youtube.com/@WisdomSharedCaroleBlueweissFollow me and send me a message on Facebook: https://www.facebook.com/caroleblueweissFollow me and send me a message on LinkedIn: https://www.linkedin.com/in/carole-blueweiss-pt-dpt-23970279/Follow me on Instagram: https://www.instagram.com/carole_blueweiss/The Wisdom Shared TeamAudio Engineering by Steve Heatherington of Good Podcasting WorksSocial Media and Marketing Coordinator: Kayla Nelson

EPISODE SUMMARYThis is a  replay of a previously released episode, for Blindness Awareness Month. In this episode, we meet Josh Burch, a 48-year-old man who was born with Optic Nerve Hypoplasia. Josh talks about the challenges of growing up blind and shares how he navigates a world built for sighted people with the help of technology and his guide dog, Lou. We also hear more from Josh's stepmother, Julie Burch, and learn how they inspired and learned from each other, and how their relationship has changed over time. Some learning gems from this episode: Don't pet a guide dog, (he or she needs to focus on guiding). Once out of harness, you can pet the dog; iPhones have an option called "VoiceOver"  which anyone can use; If you meet a blind person, don't assume they need help, ask first; Do not spoon-feed or coddle people who are blind, they are like sighted people and just need more assistance; Support groups are great like Lighthouses for the Blind; Encourage independence and build confidence; Good manners, awareness of posture and exercise matters; Tough love sometimes requires patience but it beats sympathy.For the visually-minded who prefer to listen and read or for those who need closed captioning, watch the transcript video here: https://www.youtube.com/watch?v=SIy4DpLWE94RESOURCES:Guiding Eyes for the BlindRehabilitation Center for the Blind and Visually Impaired in Daytona, FloridaJAWS, Job Access With Speech screen reader toolLighthouses for the Blind - local chapters can be found across the countryiPhone accessibility featuresOptic Nerve Hypoplasia8 Everyday Items Originally Invented for People With DisabilitiesPEOPLE MENTIONED:Anne SullivanFIND AND FOLLOW JOSH: Josh Burch: jburch73@skyrapture.comFIND AND FOLLOW JULIE:Julie's Mindfulness Art Facebook PageJulie's Author Facebook pageJulie's Author WebsiteSubscribe to Julie's mailing list for information about upcoming books, nature, recipes, and life with Josh

EPISODE SUMMARYThis is a  replay of a previously released episode, for Blindness Awareness Month. Julie Burch is an accomplished author (pen name: Juliet Brilee) and stepmother to Josh, who was born blind. Now 48 years old, he lives independently with his seeing-eye dog, Lou. In this episode, Julie shares what it was like to raise a blind child. She introduces us to how she helped Josh spatially map his environment,  and talks about how the brain's map differs for people who have vision versus people with no vision. Julie is a mindfulness coach, and she emphasizes the importance of patience, embracing "failure," using tough love to support independence, and enhancing the senses through mindful practice.For the visually-minded who prefer to listen and read or for those who need closed captioning, watch the transcript video here:  https://www.youtube.com/watch?v=8PNWizDEn30In the next episode, Dr. Blueweiss interviews Josh, who shares his perspective on life in a world built by sighted people.FIND AND FOLLOW JULIEJulie's Mindfulness Art Facebook Pagehttps://www.facebook.com/julieburch4artJulie's Author Facebook pagehttps://www.facebook.com/JbrileeauthorJulie's Author Websitehttps://julietbrilee.com/Subscribe to Julie's mailing list for information about upcoming books, nature, recipes, and life with Josh.

Episode SummaryIn part 2 of my conversation with retired FBI Special Agent Aaron Weeter, we learn more about life as an FBI agent. Aaron explains how he got started, what it was like to work on high-profile cases like 9/11, the DC Sniper, and January 6th, and how he ultimately specialized in drug-related crimes for most of his career. It was fascinating to learn about how Aaron and his colleagues used informants and undercover officers to take down doctors in the opioid epidemic.Be sure to listen to the previous episode with Aaron to learn how the opioid epidemic of the 90s spread to become the fentanyl epidemic we have today: Retired FBI Agent Reflects On Opioid CrisisFor the visually-minded who prefer to listen and read or for those who need closed captioning, watch the transcript video here: https://youtu.be/sDVbaz9FHbMRelated EpisodesRetired FBI Agent Reflects On Opioid CrisisOverdose Awareness: A Sister's TributeAddiction to Sobriety: A Mother's JourneyAnonymous SisterFind and Follow Carole and Wisdom Shared:https://www.caroleblueweiss.com/Subscribe to my YouTube channel: https://www.youtube.com/@WisdomSharedCaroleBlueweissFollow me and send me a message on Facebook: https://www.facebook.com/caroleblueweissFollow me and send me a message on LinkedIn: https://www.linkedin.com/in/caroleblueweiss/Follow me on Instagram: https://www.instagram.com/carole_blueweiss/Follow me on TikTok: https://www.tiktok.com/@wisdom_sharedThe Wisdom Shared TeamAudio Engineering by Steve Heatherington of Good Podcasting WorksSocial Media and Marketing Coordinator: Kayla NelsonProduction Intern: Cassidy Rozencwaig

Episode SummarySince 1999, more than one million people have died from a drug overdose in the United States. On International Overdose Awareness Day, we reflect on these senseless preventable deaths. Today, we hear from previous Wisdom Shared guest Anne Pratt on the loss of her brother Daniel from an accidental overdose. May this powerful personal story help spread awareness and compassion for all those affected by the devastating impact of today's out of control epidemic.ResourcesHow to use Narcan training video: https://www.anonymoussister.com/resourcesFind Naloxone near youFentanyl Test StripsIf you or someone you know is struggling with substance use disorder, SAMHSA's (Substance Abuse and Mental Health Services Administration) National Helpline, 1-800-662-HELP (4357), (also known as the Treatment Referral Routing Service) or TTY: 1-800-487-4889 is a confidential, free, 24-hour-a-day, 365-day-a-year, information service, in English and Spanish, for individuals and family members facing mental and/or substance use disorders. This service provides referrals to local treatment facilities, support groups, and community-based organizations. Callers can also order free publications and other information. You can also visit https://www.samhsa.gov. Related EpisodesAddiction to Sobriety: A Mother's JourneyAnonymous SisterRetired FBI Agent Reflects On Opioid CrisisAnne's previous episode: A Mother Shares Her Journey of the Joys and Challenges of Raising a Child with Cerebral PalsyThe Wisdom Shared TeamAudio Engineering by Steve Heatherington of Good Podcasting WorksSocial Media and Marketing Coordinator: Kayla NelsonProduction Intern: Cassidy RozencwaigFind and Follow Carole and Wisdom Shared:https://www.caroleblueweiss.com/Subscribe to my YouTube channel: https://www.youtube.com/@WisdomSharedCaroleBlueweissFollow me and send me a message on Facebook: https://www.facebook.com/caroleblueweissFollow me and send me a message on LinkedIn: https://www.linkedin.com/in/caroleblueweiss/Follow me on Instagram: https://www.instagram.com/carole_blueweiss/Follow me on TikTok: https://www.tiktok.com/@wisdom_shared

Episode SummaryOur last episode explored addiction from the perspective of loved ones. In this episode, we are looking at the opioid crisis from the point of view of a retired FBI agent, Aaron Weeter, who spent 25 years specializing in drug-related crimes. From his frontline perspective, we learn how the opioid epidemic of the 90s spread to become the fentanyl epidemic we have today. For the visually-minded who prefer to listen and read or for those who need closed captioning, watch the transcript video here: https://youtu.be/oXq6XJ_z-HIAbout Aaron WeeterBeginning in 1998, Aaron served for over 23 years as a Special Agent in the Federal Bureau of Investigation's Washington, D.C. Field Office.  He served for twenty years as a case agent and three years as a supervisor investigating matters primarily involving white-collar/financial crimes in the areas of healthcare fraud and prescription drug diversion and distribution.  During this time, Aaron also worked on a variety of national/office-wide cases including the 9-11, D.C. Sniper and January 6th investigations among others.  Aaron is a licensed Certified Public Accountant (CPA) and a Certified Fraud Examiner.  He retired from the FBI in late 2021 and recently started a fraud consulting business.  Much of Aaron's FBI investigative work focused on the illegal distribution of pharmaceutical narcotics and other controlled substances by physicians, pharmacists and street-level dealers.  He opened his first "pill case" in early 1999 in the early stages of what would become the pill epidemic and through dozens of cases thereafter, had a window into the evolution of the pill epidemic and its influence on the current fentanyl epidemic gripping the U.S.  More to Watch and ReadChasing the Dragon: The Life of an Opiate Addict - a documentary made by the FBI & DEADr. Feelgood: Dealer or Healer? - a documentary about Dr. William Hurwitz, a Virginia physician who served nearly five years in prison for drug traffickingAnonymous Sister - a documentary where director Jamie Boyle explores her family's collision with the opioid epidemicAll the Beauty and the Bloodshed - a documentary about artist and activist Nan Goldin and her personal fight to hold the Sackler family accountable for the opioid overdose crisisDemon Copperhead by Barbara Kingsolver - a novel that shows the devastating impact of the opioid epidemic on a young boy in AppalachiaDopesick: Dealers, Doctors, and the Drug Company that Addicted America by Beth Macy - the definitive account of America's opioid epidemicRaising Lazarus: Hope, Justice, and the Future of America's Overdose Crisis by Beth Macy - a sequel to DopesickDopesick - Hulu limited series remake of Beth Macy's book Empire of Pain: The Secret History of the Sackler Dynasty by Patrick Radden Keefe - a book that describes the Sackler family and their role in the opioid epidemicThe Family That Built an Empire of Pain - article by Patrick Radden Keefe that led to the bookWhat Can Be Done?Words Matter - Terms to Use and Avoid When Talking About Addictionhttps://www.cdc.gov/opioids/basics/fentanyl.html: https://www.cdc.gov/drugoverdose/prevention/index.htmlFentanyl Test StripsFind Narcan Near YouIf you or someone you know is struggling with substance use disorder, SAMHSA's (Substance Abuse and Mental Health Services Administration) National Helpline, 1-800-662-HELP (4357), (also known as the Treatment Referral Routing Service) or TTY: 1-800-487-4889 is a confidential, free, 24-hour-a-day, 365-day-a-year, information service, in English and Spanish, for individuals and family members facing mental and/or substance use disorders. This service provides referrals to local treatment facilities, support groups, and community-based organizations. Callers can also order free publications and other information. You can also visit https://www.samhsa.gov. How opioid addiction occurs - Mayo ClinicList of Treatment Facilities and Support GroupsDrug Takeback ProgramsSafe Drug DisposalRelated EpisodesAddiction to Sobriety: A Mother's JourneyAnonymous SisterFind and Follow Carole and Wisdom Shared:https://www.caroleblueweiss.com/Subscribe to my YouTube channel: https://www.youtube.com/@WisdomSharedCaroleBlueweissFollow me and send me a message on Facebook: https://www.facebook.com/caroleblueweissFollow me and send me a message on LinkedIn: https://www.linkedin.com/in/caroleblueweiss/Follow me on Instagram: https://www.instagram.com/carole_blueweiss/The Wisdom Shared TeamAudio Engineering by Steve Heatherington of Good Podcasting WorksSocial Media and Marketing Coordinator: Kayla Nelson

Episode SummaryIn this episode, I'm joined by two special guests, harm reduction activist Julie Stampler and award-winning documentary filmmaker Jamie Boyle.  We discuss the opioid epidemic through the frame of the incredible documentary Anonymous Sister, directed by Jamie Boyle, produced by Marilyn Ness, and executive produced by Julie Stampler. This is the story of one American family, but what happened to them could happen to any family.  We learn about Julie's brother, Jonathan,  who died from a heroin overdose, and how his death led Julie into her life of activism and harm reduction work. We see two different paths to managing addiction and substance abuse disorder. This is a story told by two women who watched their siblings suffer.  This show is dedicated to all the siblings out there who are anonymous witnesses.For the visually-minded who prefer to listen and read or for those who need closed captioning, watch the transcript video here: https://youtu.be/oD0vVqw-w6wAbout Anonymous SisterWhen a young woman turns to the camera for refuge, she ends up with a firsthand account of what will become the deadliest man-made epidemic in United States history. From the producers of Dick Johnson Is Dead and Summer of Soul, Anonymous Sister is two-time Emmy Award winner Jamie Boyle's chronicle of her family's collision with the opioid epidemic.Anonymous Sister will be playing at IFC Center in New York June 2nd - 8th and Laemmle Theater in Los Angeles June 16th - 22nd, with more cities to follow.  Select screenings will be accompanied by special events and panels. For details and info about upcoming events: anonymoussister.comhttps://www.facebook.com/AnonymousSisterFilmhttps://www.instagram.com/anonymoussisterfilm/https://twitter.com/AnonSisterFilmAbout Jamie BoyleJamie Boyle is a two-time Emmy Award winning documentary filmmaker. Her work has played at Sundance, Tribeca, and SXSW. In 2019, she was part of the inaugural Sundance Talent Forum & Catalyst Lab and on DOC NYC's 40 Under 40 list. She is the writer and editor of BREAKING THE NEWS, premiering Tribeca Film Festival in June 2023. She is the director and editor of ANONYMOUS SISTER, a personal feature documentary coming to theaters in summer 2023 and produced by Big Mouth Productions (DICK JOHNSON IS DEAD, CAMERAPERSON) and Vulcan Productions (SUMMER OF SOUL, THE REASON I JUMP). She was the editor, producer, and cinematographer of JACKSON (Showtime), winner of the 2018 Emmy® Award. She was the editor of TRANS IN AMERICA: TEXAS STRONG, winner of the 2019 Emmy® for Outstanding Short Documentary and two Webby Awards. TEXAS STRONG premiered at SXSW and launched on them. She was the associate editor and production manager of E-­TEAM (Netflix), which won the 2014 Sundance Cinematography Award and was nominated for two News & Documentary Emmys®, including Best Documentary. She was the director, cinematographer, and editor of the short documentary TAKE A VOTE, which premiered at DOC NYC in 2020. She was the in-house editor for The American Civil Liberties Union and Human Rights Watch. She taught at the Bronx Documentary Center, as a guest lecturer at Columbia University, and served as a judge for the News & Documentary Emmy Awards.https://www.jamielboyle.com/About Julie StamplerJulie Stampler is a voiceover actress and harm reduction activist who is a National Harm Reduction Coalition Board Member. Julie's harm reduction advocacy work aims to help people who use drugs stay alive rather than pushing for abstinence-only approaches. She advocates for the importance of overdose prevention programs, training people on when and how to use and distribute naloxone/Narcan, and advocating for overdose prevention centers that focus on keeping people alive with access to social service resources. Julie's life-saving work stems from her brother Jonathan's untimely death from a heroin overdose 20 years ago. In a twist of irony, her stepfather Jack Fishman was the scientist credited with inventing naloxone which can reverse an overdose from heroin, fentanyl, and prescription opioid medications—when given in time. https://juliestampler.com/From This EpisodeHow to use Narcan training video: https://www.anonymoussister.com/resourcesFind Naloxone near youJulie's stepfather Jack FishmanThe Drug That Saves Lives Even if It's Never Usedhttps://dancesafe.org/ - site Julie mentions where you can order fentanyl test strips and drug testing kitsMarilyn Ness5 myths about using Suboxone to treat opiate addictionDEA takes aggressive stance toward pharmacies trying to dispense addiction medicineAbout XylazineFind and Follow Carole and Wisdom Shared:https://www.caroleblueweiss.com/Subscribe to my YouTube channel: https://www.youtube.com/@WisdomSharedCaroleBlueweissFollow me and send me a message on Facebook: https://www.facebook.com/caroleblueweissFollow me and send me a message on LinkedIn: https://www.linkedin.com/in/carole-blueweiss-pt-dpt-23970279/Follow me on Instagram: https://www.instagram.com/carole_blueweiss/The Wisdom Shared TeamAudio Engineering by Steve Heatherington of Good Podcasting WorksSocial Media and Marketing Coordinator: Kayla Nelson

Episode SummaryMelissa Conrey shares her story of living with drug and alcohol addiction and now, sobriety. A single mom of two, she worries about her children who have been exposed to so much. She went back to school to earn her degrees and is now a registered dietician. Melissa speaks openly about her challenges and her victories. For the visually-minded who prefer to listen and read or for those who need closed captioning, watch the transcript video here: https://youtu.be/yTUuE_L-L8gFrom This EpisodeA.A. (Alcoholics Anonymous): https://www.aa.org/Al-Anon: https://al-anon.org/Melissa's Roller Derby Team: https://centralcoastrollerderby.squarespace.com/Find and Follow Melissa:Instagram: @simplyme_rdemail: melissadae2001@yahoo.comFind and Follow Carole and Wisdom Shared:https://www.caroleblueweiss.com/Subscribe to my YouTube channel: https://www.youtube.com/@WisdomSharedCaroleBlueweissFollow me and send me a message on Facebook: https://www.facebook.com/caroleblueweissFollow me and send me a message on LinkedIn: https://www.linkedin.com/in/carole-blueweiss-pt-dpt-23970279/Follow me on Instagram: https://www.instagram.com/carole_blueweiss/The Wisdom Shared TeamAudio Engineering by Steve Heatherington of Good Podcasting WorksSocial Media and Marketing Coordinator: Kayla Nelson

Episode SummaryThis episode features mother and daughter Bobbie and Angela Singletary. This dynamic duo shares their story, full of hardship, resilience, joy, love, and support. Bobbie, Angela, and two of Angela's kids all have achondroplasia, a form of dwarfism, as did Angela's late sister Cindy. Listen how Cindy's life at 33 could not be saved despite the huge sacrifices made by her mom and sister. We will hear how the Medicaid system failed them and how in spite of life challenges, including discrimination, systemic inequity, and personal struggles with alcohol,  these women continue to advocate for others.For the visually-minded who prefer to listen and read or for those who need closed captioning, watch the transcript video here: https://www.youtube.com/watch?v=1qFpEPqzdD0About Angela and BobbieAngela's Podcast: A Little PerspectiveAngela's WebsiteThe book featuring Bobbie's essay: A Little Perspective: REAL Stories of Little LadiesDocumentary EveryBODY Matters featuring AngelaAngela's interview with NPR about the treatment for achondroplasia: https://www.bodiespodcast.com/resource-pages/not-your-averageFrom This EpisodeTulane UniversitySpecial Delivery From Pregnancy to ToddlerhoodMindy Silva  - Wired on DevelopmentThe Americans with Disabilities Act (ADA)Dwarfism: Raising a Little Person, Wisdom Shared episode with Audrey CurwinDwarfism: Life as a Little Person, Wisdom Shared episode with Jillian CurwinDwarfism: A Mother-Daughter Conversation, Wisdom Shared episode with Audrey and Jillian CurwinFind and Follow Carole and Wisdom Shared:https://www.caroleblueweiss.com/Subscribe to my YouTube channel: https://www.youtube.com/@WisdomSharedCaroleBlueweissFollow me and send me a message on Facebook: https://www.facebook.com/caroleblueweissFollow me and send me a message on LinkedIn: https://www.linkedin.com/in/carole-blueweiss-pt-dpt-23970279/Follow me on Instagram: https://www.instagram.com/carole_blueweiss/The Wisdom Shared TeamAudio Engineering by Steve Heatherington of Good Podcasting WorksSocial Media and Marketing Coordinator: Kayla Nelson

EPISODE SUMMARYLisa Greer is a mother of five, a former executive and business owner, a convener of charitable events, and the author of Philanthropy Revolution.  We discuss her childrens' diagnoses with cancer and adolescent-onset epilepsy and how that affected the whole family. Lisa explains how transparency fosters trust, something that applies to the worlds of charitable giving, healthcare, and parenting.  There are so many impactful takeaways from this wide-ranging conversation with Lisa, as the wisdom she has gained in her variety of roles interconnect in sometimes surprising ways. For the visually-minded who prefer to listen and read or for those who need closed captioning, watch the transcript video here: https://youtu.be/KE1KrICHEPMABOUT LISA GREERLisa's website: https://www.lisagreer.com/Lisa's book: Philanthropy Revolution: How to Inspire Donors, Build Relationships, and Make a DifferenceLisa's blog newsletter: https://philanthropy451.substack.com/FROM THIS EPISODEmyFace: https://www.myface.org/Epilepsy Foundation: https://www.epilepsy.com/Crohn's & Colitis Foundation: https://www.crohnscolitisfoundation.org/The Feldenkrais MethodStacy Barrows is a Doctor of Physical Therapy, Certified Feldenkrais Practitioner, PMA-National Pilates Certified Teacher, and creator of the Smartroller. Visit  https://www.smartroller.net/ and https://smartsomaticsolutions.com/Wonder by R.J. PalacioAdolescent Medicine is now a subspecialty but as Lisa has experienced with her kids, it's not available everywhere.Find and Follow Carole and Wisdom Shared:https://www.caroleblueweiss.com/Follow me and send me a message on Facebook: https://www.facebook.com/caroleblueweissFollow me and send me a message on LinkedIn: https://www.linkedin.com/in/carole-blueweiss-pt-dpt-23970279/Follow me on Instagram: https://www.instagram.com/carole_blueweiss/The Wisdom Shared TeamAudio Engineering by Steve Heatherington of Good Podcasting WorksSocial Media and Marketing Coordinator: Kayla Nelson

Episode SummaryIn this episode, we meet Patty Braendel, a special education teacher who is an adoptive mom, a birth mom, and also a foster mom. We hear about her journey to parenthood with all its ups and downs and learn how her experiences as a parent have helped her work in special education. For the visually-minded who prefer to listen and read, watch the transcript video here: https://youtu.be/6gINmxyiQ5oResourcesFoster the FamilyFlorida Department of Children and FamiliesEmpowered to ConnectFind and Follow PattyEmail Patty: pbraendel@gmail.comFind and Follow Carole and Wisdom Sharedhttps://www.caroleblueweiss.com/Follow me and send me a message on Facebook: https://www.facebook.com/caroleblueweissFollow me and send me a message on LinkedIn: https://www.linkedin.com/in/carole-blueweiss-pt-dpt-23970279/Follow me on Instagram: https://www.instagram.com/carole_blueweiss/

EPISODE SUMMARYKathryn Paylor-Bent has a lot of wisdom to share and we cover a lot of ground in this conversation. We talk about her experiences as a disabled woman, wheelchair user, and the CEO of two successful businesses. She uses her disability as inspiration for her successful career as an adaptive fashion designer and as a consultant to other organizations.She shares her experiences with ableism, including medical and digital ableism like shadow banning on social media and examples from her personal life. In light of some of these negative experiences, she also shares solutions as an advocate and suggests how we can better understand the disability community.  Another important part of Kathryn's story is being a mother to Tom, her son with autism and mental health challenges.  She shares her vision for Tom's future as well as the future of other young people with disabilities through her business Seated Sewing.  For the visually-minded who prefer to listen and read, watch the transcript video here: https://youtu.be/rpJslXjawTkFROM THIS EPISODE + RESOURCESKathryn describes ableism by saying, "Ableism is where people who are without disability assume they know what is right for us." She describes several examples, including digital ableism and medical ableism. Learn more about ableism here.Tommy Hilfiger AdaptiveDogs For GoodFunctional Neurological Disorder (FND)North East Autism Society: the charity behind the school Tom attendsNational Autistic SocietyOpen Style LabPointing Out Meaningful Representation for Children With Disabilities FIND AND FOLLOW KATHRYNSeated SewingConsult SeatedKathryn's LinkedInFind and Follow Carole and Wisdom Shared:https://www.caroleblueweiss.com/Follow me and send me a message on Facebook: https://www.facebook.com/caroleblueweissFollow me and send me a message on LinkedIn: https://www.linkedin.com/in/carole-blueweiss-pt-dpt-23970279/Follow me on Instagram: https://www.instagram.com/carole_blueweiss/

Episode Summary:In this episode, we meet Dom Raban, a designer, software developer, and father of Issy.  Issy underwent cancer treatment at age 13. While Issy is now a young adult and cancer-free, the lack of information given to Issy during her treatments prompted her father to create a child-centered app called  Xploro. This amazing app was designed to improve the health literacy of children, to decrease procedural anxiety, and  to improve the hospital experience for all children and their families.For the visually-minded who prefer to listen and read, watch the transcript video here: https://youtu.be/5evWmZZ4BS8From This Episode:About Ewing SarcomaStudy showing Xploro reduces anxiety about hospital procedures: https://www.healthtechdigital.com/new-study-shows-xploro-app-reduces-procedural-anxiety-in-children/Find and Follow Dom:Dom's LinkedIn profile: https://linkedin.com/in/domrabanXploro: https://xploro.health/Email Dom: dom@xploro.healthDom's Twitter: @DomRabanDom's Company's Twitter: @CorporationPopFind and Follow Carole and Wisdom Shared:https://www.caroleblueweiss.com/Follow me and send me a message on Facebook: https://www.facebook.com/caroleblueweissFollow me and send me a message on LinkedIn: https://www.linkedin.com/in/carole-blueweiss-pt-dpt-23970279/Follow me on Instagram: https://www.instagram.com/carole_blueweiss/

Eleven-year-old Easton and his mother Jennifer are a great son-mom team. In this episode, we will hear from both and learn about support dogs, supercars, playgrounds, pregnancy, birth, and spina bifida. For the visually-minded who prefer to listen and read, watch the transcript video here: https://youtu.be/yVwx-zwqNhMFIND AND FOLLOW JENNIFER:crofootjennifer@gmail.comABOUT SPINA BIFIDA:https://www.spinabifidaassociation.org/https://redefiningspinabifida.org/FROM THIS EPISODE:Learn about the inclusive playground Jennifer spearheaded with her local Rotary Club:  https://www.rotaryplaygrounds.org/About Ethan's favorite sport, Wheelchair Motocross or WCMX: https://en.wikipedia.org/wiki/WCMX_(sport)

George Estreich is an award-winning writer whose work includes poetry, memoir, and non-fiction. He is also a musician who plays with the band Mule On Fire. In addition to writing and music. George is an activist, storyteller, husband, and father to Ellie and Laura.  George talks about raising his daughter, Laura, who was born with Down syndrome. And then he talks about biotechnology, disability, and the stories we tell ourselves. He discusses how all people are more than a single identity and not only are stereotypes untrue, but they are also incomplete.For more information about Down syndrome, see here.Find and follow George: https://georgeestreich.com/Listen to Laura's episode here: https://wisdom-shared.simplecast.com/episodes/laura-eFROM THIS EPISODE:The Shape of the Eye by George EstreichFables and Futures: Biotechnology, Disability, and the Stories We Tell Ourselves by George EstreichUnexpected: Parenting, Prenatal Testing, and Down Syndrome by Alison Piepmeier with George Estreich and Rachel AdamsNo Pity: People with Disabilities Forging a New Civil Rights Movement by Joseph P. ShapiroWhat Can a Body Do?: How We Meet the Built World by Sara HendrenAlison PiepmeierUnified Sports - Special OlympicsIndividuals with Disabilities Education Act (IDEA)Report from the Hastings Center about the marketing of NIPT: Bias and Inaccuracy in Marketing Noninvasive Prenatal Tests 

RESOURCES:Down syndrome is a genetic disorder caused when abnormal cell division results in an extra full or partial copy of chromosome 21. Learn more about Down syndrome including the different types: About Down Syndrome - Mayo Clinic FROM THIS EPISODE:DEC - Disability Equity CenterWINGS Transition ProgramUnified Sports - Special OlympicsOregon Health & Science UniversityCollege of CharlestonGeorge EstreichAlison PiepmeierBOOKS:Unexpected: Parenting, Prenatal Testing, and Down Syndrome by Alison Piepmeier with George Estreich and Rachel AdamsThe Shape of the Eye by George EstreichFables and Futures: Biotechnology, Disability, and the Stories we Tell Ourselves by George Estreich

RESOURCES:Guiding Eyes for the BlindRehabilitation Center for the Blind and Visually Impaired in Daytona, FloridaJAWS, Job Access With Speech screen reader toolLighthouses for the Blind - local chapters can be found across the countryiPhone accessibility featuresOptic Nerve Hypoplasia8 Everyday Items Originally Invented for People With DisabilitiesPEOPLE MENTIONED:Anne SullivanFIND AND FOLLOW JOSH: Josh Burch: jburch73@skyrapture.comFIND AND FOLLOW JULIE:Julie's Mindfulness Art Facebook PageJulie's Author Facebook pageJulie's Author WebsiteSubscribe to Julie's mailing list for information about upcoming books, nature, recipes, and life with Josh

FIND AND FOLLOW JULIEJulie's Mindfulness Art Facebook Pagehttps://www.facebook.com/julieburch4artJulie's Author Facebook pagehttps://www.facebook.com/JbrileeauthorJulie's Author Websitehttps://julietbrilee.com/Subscribe to Julie's mailing list for information about upcoming books, nature, recipes, and life with Josh. 

Dwarf Tossinghttps://en.wikipedia.org/wiki/Dwarf-tossingRecent Dinklage/Disney Statements onSnow White and the Seven Dwarfshttps://www.npr.org/2022/01/26/1075761231/peter-dinklage-disneyRESOURCESBooksFar from the Tree: Parents, Children and the Search for Identity by Andrew Solomonhttp://andrewsolomon.com/books/far-from-the-tree/Thinking Big: The Story of a Young Dwarf , by Susan Kuklinhttps://www.amazon.com/Thinking-Big-Story-Young-Dwarf/dp/0688058264The Missing Piece by Shel Silverstein– (animated)https://www.youtube.com/watch?v=4gEjCJOzqXcThe Cracked Pot Children's Storyhttps://alltimeshortstories.com/life-the-cracked-pot/AssociationsLittle People of Americahttps://www.lpaonline.orgAmerican Association of People with Disabilitieshttps://www.aapd.comPeopleRebecca Cokely, Ford Foundation Program Officer, U.S. Disability Rightshttps://www.fordfoundation.org/about/people/rebecca-cokley/Judy Heumann, Lifelong Advocate for the rights of disabled peoplehttps://judithheumann.comFOLLOW AND CONTACT JILLIANPodcast:https://podcasts.apple.com/us/podcast/always-looking-up/id1567615385Instagram:@jill_ilana, @alwayslookingup.podcastWebsite:https://www.jillianilana.comEmail:alwayslookingup227@gmail.com

FROM THIS EPISODEAchondroplasiaAchondroplasia is a form of short-limbed dwarfism. The word achondroplasia literally means "without cartilage formation." https://medlineplus.gov/genetics/condition/achondroplasia/ Jillian's Disney Project (includes photos)https://cripplemedia.com/waiting-for-my-disney-princess/ Thinking Big: The Story of a Young Dwarf  Children's Bookhttps://www.amazon.com/Thinking-Big-Story-Young-Dwarf/dp/0688058264 Little People, Big World  TV Showhttps://go.tlc.com/show/little-people-big-world-tlc Nancy Volpe Beringer: Fashion Design for Sustainability and Adaptabilityhttps://www.nancyvolpeberinger.com Little People of Americahttps://www.lpaonline.org American Association of People with Disabilitieshttps://www.aapd.com Rebecca Cokely, Ford Foundation Program Officer, U.S. Disability Rightshttps://www.fordfoundation.org/about/people/rebecca-cokley/ Maria Town, American Association of People with Disabilities, President and CEOhttps://www.aapd.com/about/maria-town/ Wigs and Wisheshttps://www.wigsandwishes.org FOLLOW AND CONTACT JILLIAN Podcast: https://podcasts.apple.com/us/podcast/always-looking-up/id1567615385Instagram:@jill_ilana, @alwayslookingup.podcastWebsite:https://www.jillianilana.comEmail: alwayslookingup227@gmail.com 

FROM THIS EPISODEOsteogenesis Imperfecta Osteogenesis imperfecta (OI) is an inherited (genetic) bone disorder that is present at birth. It is also known as brittle bone disease. https://www.hopkinsmedicine.org/health/conditions-and-diseases/osteogenesis-imperfecta Skeletal DisplaysiaSkeletal dysplasia is the medical term for a group of about 400 conditions that affect bone development, neurological function, and cartilage growth, including its most common form, achondroplasia.https://www.hopkinsmedicine.org/health/conditions-and-diseases/skeletal-dysplasia AchondroplasiaAchondroplasia is a form of short-limbed dwarfism. The word achondroplasia literally means "without cartilage formation." https://medlineplus.gov/genetics/condition/achondroplasia/ Little People of Americahttps://www.lpaonline.org The Missing Piece – Animated Shel Silverstein:https://www.youtube.com/watch?v=4gEjCJOzqXc The Cracked Pot Children's Storyhttps://alltimeshortstories.com/life-the-cracked-pot/ Crip Camp: The Filmhttps://www.youtube.com/watch?v=XRrIs22plz0 Crip Camp: The Revolutionhttps://cripcamp.com FINDING JILLIAN Podcast: https://podcasts.apple.com/us/podcast/always-looking-up/id1567615385Instagram:@jill_ilana, @alwayslookingup.podcastWebsite:https://www.jillianilana.comEmail:alwayslookingup227@gmail.com

Kathy Cocks, Podcaster and InterviewerKathy has been a registered nurse for over 30 years, working in intensive care, with disabled school children, dialysis and now in the community with the geriatric population. She works with families and their loved ones to find the right solutions for their situation, and maintains an active network of partners to help navigate the eldercare journey.Knowledge for Caregivers Podcasthttps://www.kathysconsulting.com/podcastContact Kathy:Website: https://www.kathysconsulting.comEmail: info@kathysconsulting.comSchool of Life Book Collection:https://www.theschooloflife.comContact Carole Blueweiss:Website: caroleblueweiss.comEmail: clevpt@gmail.com 

You are welcome to share the wisdom from this episode. Please be sure to credit: “Ep. 13, Anorexia: A Father's Perspective", Courtesy of Wisdom Shared Podcast with Carole Blueweiss.”Mentioned in this EpisodeTREATMENTS & TREATMENT PROGRAMSFamily-Based TreatmentA type of therapy which involves all family members in treatment of the individual with the disorder. Currently considered the gold standard approach for addressing anorexia nervosa. Views food as medicine, and places responsibility for all meal decisions, shopping, and preparation with caretaker in early phases of this modality. https://www.feast-ed.org/what-is-family-based-treatment/ FAMILY THERAPISTAmy Begelhttps://www.amybegel.com/ ADOLESCENT MEDICINE EATING DISORDER SPECIALISTDr. Jennifer Northridgehttps://doctors.hackensackmeridianhealth.org/provider/Jennifer+L.+Northridge/1317171 TREATMENT FACILITIES MENTIONED IN THIS EPISODEPrinceton Center for Eating Disorders at Penn Medicinehttps://www.princetonhcs.org/care-services/center-for-eating-disorders-careHidden River, Chester NJhttps://hiddenriverhealing.com LEVELS OF CAREInpatient: patient acutely ill, and requires medical stabilization.Residential: highly structured live-in environment for medically stable patients; offers 24X7 support.Partial Hospitalization (PHP): a step-down treatment-based day program; offers recovery-based therapies and support along with opportunities to practice recovery outside of program.Intensive Outpatient (IOP): flexible treatment program; assumes patient is able to participate in school, work, and so on. Treatment team (therapist, nutritionist) providing regular support. 

FOLLOW IVANAFacebook: @mauimovementlessonsLinkedIn: https://www.linkedin.com/in/ivana-gadient-8b21a536/CONTACT VERENAemail: vera9nyc@yahoo.comRESOURCES recommended by Ivana"Wheelchairs are a HUGE conversation. It is best to create a trusted, knowledgable and openminded team that you hand pick to help you successfully seat your loved one"https://aci.health.nsw.gov.au/networks/spinal-cord-injury/spinal-seating/module-6/wheelchair-seating-a-complex-puzzleTALK TOOLS: for finding a therapist, and continuing education.https://talktools.com FEEDING MATTERS: Parent Support Network"Feeding Matters is a great organization, started by two moms. They pursued chasing the CDC for a stand alone diagnosis and code called PFD pediatric feeding disorder. They dedicated five years to this and it came to pass this year. They have a lot of free resources and supports for parents."https://www.feedingmatters.org JABBERMOUTHS: Speech, Oral-Motor, and Feeding Therapy"This is Jewel's latest SLP who is amazing!  I highly recommend Jenn, she is licensed in HI and AZ and does Zoom lessons. Highly skilled, highly educated, great instinct, grew up around disability and very comfortable around our families. She can teach premature babies to latch on to both breast and bottle!"https://jabbermouths.com/ THERAPISTS AND THERAPIES in episodeARLENE WARD is the owner of Genesis Rehabilitation Ltd., a vocational rehabilitation and disability management company based in Nanaimo, BC. Their goal is to keep workers at work. She is also an Adjunct Professor at the University of Northern BC Canada.https://www.linkedin.com/in/arleneatgenesis/JUDITH HEUMANN is an internationally recognized disability advocate who served in the Clinton and Obama Administration and was a Senior Fellow at the Ford Foundation.https://judithheumann.comKAREN ERICKSON, PH.D. is the Director of the Center for Literacy and Disability Studies, a Professor in the Division of Speech and Hearing Sciences, and the Yoder Distinguished Professor in the Department of Allied Health Sciences, School of Medicine at the University of North Carolina at Chapel Hill.https://www.med.unc.edu/ahs/clds/directory/karen-erickson/JENNIFER BUCK, MA, CCC-SLP, owner of Jabbermouths Therapy, is a licensed and certified Speech-Language Pathologist with over a decade of experience in working with individuals with disabilities. https://jabbermouths.comNEUROMOVEMENT THERAPY: Anat Baniel and NeuroMovement® (ABMN®)Anat Baniel, a student of Moshe Feldenkrais, developed and evolved NeuroMovement® from 30+ years of experience with thousands of clients using practical applications of brain plasticity principles. The Anat Baniel Method® approach is founded in neuroscience and the biodynamics of the human body, and utilizes movement and the 9 Essentials to create conditions for the brain to wake up and upgrade its own functioning.Read more about the Nine Essentials:https://www.anatbanielmethod.com/about/neuromovement/neuromovement-and-9-essentialsHIPPOTHERAPY: an approach to physical therapy where the patient rides horses in order to address physical health.https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5175116/AYSO VIP: provides a quality soccer experience for individuals whose physical or mental disabilities.https://ayso.org/play/vip/PRODUCTSKINDERPACK produces baby carriers that are small-batch made, exclusively in the USA in sizes to fit infants, toddlers, and even preschool sized children.https://mykinderpack.com

NEUROMOVEMENT THERAPY: Anat Baniel and NeuroMovement® (ABMN®)Anat Baniel, a student of Moshe Feldenkrais, developed and evolved NeuroMovement® from 30+ years of experience with thousands of clients using practical applications of brain plasticity principles. The Anat Baniel Method® approach is founded in neuroscience and the biodynamics of the human body, and utilizes movement and the 9 Essentials to create conditions for the brain to wake up and upgrade its own functioning.Read more about the Nine Essentials:https://www.anatbanielmethod.com/about/neuromovement/neuromovement-and-9-essentials THE PODCASTING WORKSHOP WITH SETH GODIN: how I learned to podcast!https://akimbo.com/thepodcastingworkshop    

THE PODCASTING WORKSHOP WITH SETH GODIN: how I learned to podcast!https://akimbo.com/thepodcastingworkshopNEUROMOVEMENT THERAPY: Anat Baniel and NeuroMovement® (ABMN®)Anat Baniel, a student of Moshe Feldenkrais, developed and evolved NeuroMovement® from 30+ years of experience with thousands of clients using practical applications of brain plasticity principles. The Anat Baniel Method® approach is founded in neuroscience and the biodynamics of the human body, and utilizes movement and the 9 Essentials to create conditions for the brain to wake up and upgrade its own functioning.Read more about the Nine Essentials:https://www.anatbanielmethod.com/about/neuromovement/neuromovement-and-9-essentials

Select QuotesYou are welcome to share the wisdom from this episode. Please be sure to credit: “_Ep. 11, JoAnne Robb, Courtesy of Wisdom Shared Podcast with Carole Blueweiss._”“When we first were diagnosed—you'll see that I'm using the word ‘we'; I think of [Type 1] as a family disease in a lot of ways, especially when kids are young. It's too much for the kids to carry by themselves.”“When I thought about what would be hard for a kid around diabetes management, I would have thought of the shots and the needles and the pokes, but really what's hard is having this constant numbers game.”“There's a lot of anxiety about being a parent of a kid with Type 1. And I feel like some of the information out there kind of heightens that anxiety. I feel like my contribution to this dialogue is to say, there's a way to do this more calmly.”"Pump supplies are really expensive, CGM is really expensive, insulin is really expensive."“How we approach [Type 1 Diabetes] emotionally truly makes a difference in our relationship to the disease…and ultimately in our children's relationship to the disease.”"And the other thing that 's been completely invaluable, which I could not pitch more strongly, is diabetes camp...we went to family camp and we gained a lot of community, but also a lot of information.“Rstricting food too much can have a mental health boomerang effect that you really don't want.”"This is not just a medical condition, even though it seems like it is, It's also an emotional condition...and a lowercase trauma.""I do think that the way that parents talk about this trauma of diabetes makes a difference in the child's relationship to the disease."“Learning Diabetes is like drinking from a fire hose.”“The Diabetes community in general is very generous about wanting to help each other because we all know exactly what we're going through.”“My biggest piece of advice is that you will learn this and your child will be okay and you will be okay. And that doesn't mean everything will be good all the time, but this is survivable.”Resources from this EpisodeSUPPORT RESOURCESSWEET TALK: JoAnne's parenting support site www.diabetessweettalk.com  BRAVE BUDDIES, an online listserv which supports parents of kids with Type 1 https://groups.io/g/BraveBuddies  DIABETES CONNECTIONS PODCAST with Stacey Simms https://diabetes-connections.comCAMPShttps://dyf.org JoAnne writes, “My personal attachment is to DYF, which is local to the Bay Area and has an amazing camp, for kids and kids with their families, in Kings Canyon National Park.”  Camp Sweeney in Texas https://campsweeney.org  Camp Kudzu in Georgia https://www.campkudzu.org  Clara Barton & Camp Joslin Resident Camps in Massachusetts https://www.bartoncenter.org/programs/resident-camps/  Camp Morris in North Carolina https://www.thedfc.org/campmorrisLEARN MORE ABOUT THE HIGH PRICE OF INSULINhttps://www.rand.org/news/press/2020/10/06.html](https://www.rand.org/news/press/2020/10/06.htmlhttps://www.rand.org/blog/rand-review/2021/01/the-astronomical-price-of-insulin-hurts-american-families.html

You are welcome to share the wisdom from this episode. Please be sure to credit: “_Ep. 10, Ariana Speyer, Courtesy of Wisdom Shared Podcast with Carole Blueweiss._”In my conversation with Ariana, we covered a lot of ground. Here are some of the highlights.Parenting a child with special needs in some ways prepared Ariana and her husband for the COVID-19 pandemic, “Because risk benefit analysis is something we've been very used to doing since my daughter was very little, and that's something people are grappling with a lot of: Is this worth it? Does this make sense? Is the benefit worth the risk? You know, all of those questions we have to ask ourselves now all the time we were already pretty used to asking ourselves, like, is it worth it to have an MRI?”2. We discuss labels, and how the bureaucratic drive to quantify every special needs child is an ongoing challenge for parents. “If I were to talk about her as a human, as somebody that I love, I would say she's silly. She loves to dance. She's nine years old. She enjoys all kinds of music and hanging out with her grandparents and watching movies. If I was going to talk about her labels, I would say that she's non-ambulatory, non-verbal, and she has multiple disabilities.”3. Bedside manner isn't something every doctor is trained in, but it can make all the difference. “Ideally, a doctor will come with a certain amount of positivity and kind of connectedness. That makes you feel safe and like you're working together collaboratively to figure out the next best thing.”4. The Anat Baniel Method, or ABM Method, provided a transformational, movement-based way of working with Calliope and a new career and community for Ariana. “From the very beginning, I just felt a visceral response to the ABM approach, which is so gentle. And so hard to describe—giving Calliope movement experiences that she wouldn't have on her own in a way that would develop her own potential.”5. In ABM, resting is part of learning. “Rest is so essential to how ABM operates in every movement lesson. There's so much resting and that's a time when you can kind of notice differences and noticing differences in our work is the fundamental unit of learning. So having intensive practice time, and then resting in between to see what happens with how the system takes that information in is an interesting model. And it's been shown to work pretty powerfully.”6. It's hard not to compare your neurodiverse child's development to “typical” children. “Every birthday was incredibly painful and the uncertainty felt more overwhelming than it does now. There's something to be said just for the passage of time and it not being so fresh, but…there's always going to be grief.”7. Having a community of other special needs parents can be really good medicine. “The support of that community is essential for mitigating or at least bonding over all of these challenges so that they feel less isolating and also less scary.”8. I always ask parents who I interview how they take care of themselves. For Ariana, it's a combination: “ABM movement lessons saved my sanity and my body during the pandemic. I've become very dependent on them in a way that I hadn't anticipated would be possible. Going for walks has been another thing that I've found incredibly therapeutic. And then other than that, you know, trashy TV, ice cream, and beer.” TERMS, TREATMENT MODALITIES, and RESOURCES in this EPISODEARIANA SPEYERhttps://www.arianaspeyer.comANAT BANIEL AND NEUROMOVEMENT®https://www.anatbanielmethod.comAnat Baniel, a student of Moshe Feldenkrais, developed and evolved NeuroMovement® from 30+ years of experience with thousands of clients using practical applications of brain plasticity principles. The Anat Baniel Method® approach is founded in neuroscience and the biodynamics of the human body, and utilizes movement and the 9 Essentials to create conditions for the brain to wake up and upgrade its own functioning.Read more about the Nine Essentials:https://www.anatbanielmethod.com/about/neuromovement/neuromovement-and-9-essentialsEMDRhttps://www.emdr.comEMDR (Eye Movement Desensitization and Reprocessing) is a psychotherapy that enables people to heal from the symptoms and emotional distress that are the result of disturbing life experiences.  Repeated studies show that by using EMDR therapy people can experience the benefits of psychotherapy that once took years to make a difference. It is widely assumed that severe emotional pain requires a long time to heal.  EMDR therapy shows that the mind can in fact heal from psychological trauma much as the body recovers from physical trauma. EQUINE THERAPYhttps://www.goodtherapy.org/learn-about-therapy/types/equine-assisted-therapyEquine-assisted psychotherapy, also called equestrian therapy or horse therapy, is a type of experiential mental health treatment that involves a person in therapy interacting with horses. Designed for people of all ages, equine therapy has been shown to treat a wide range of mental health issues, addressing both physical and psychological concerns associated with a diagnosis.FRUIT-EZEhttps://www.fruiteze.comFruit-Eze™ fruit blend is a safe, effective, all-natural alternative to laxatives made of prunes, raisins, dates, and prune juice.MUSIC THERAPYhttps://www.musictherapy.orgMusic Therapy is the clinical & evidence-based use of music interventions to accomplish individualized goals within a therapeutic relationship by a credentialed professional who has completed an approved music therapy program. SUZANNE MORRIS, Speech Therapist, Virginiahttps://www.new-vis.comSHARON OLIENSIS, Anat Baniel Method NeuroMovement® (ABMN®)practitionerhttp://www.sharono.biz/index2.htmlMARCY LINDHEIMER, Anat Baniel Method NeuroMovement® (ABMN®) senior practitionerhttps://marcylindheimer.comSTURGE-WEBER SYNDROMEhttps://rarediseases.info.nih.gov/diseases/7706/sturge-weber-syndromeSturge-Weber syndrome (SWS) is a rare disorder affecting the skin and nervous system. Babies with SWS are born with a birthmark on their face known as a port-wine stain. Port-wine birthmarks are caused by enlarged blood vessels right underneath the skin. People with Sturge-Weber syndrome also have clusters of abnormal blood vessels between the layers of tissue that cover the brain and spine known as leptomeningeal angiomas. They may also have increased pressure in the eyes known as glaucoma. Other symptoms of SWS may include seizures, muscle weakness, developmental and intellectual disability. SWS is caused by a mutation in the GNAQ gene.THE WORLD'S BIGGEST PIANO MAT by SMART PLANETSearch for this product online and purchase from your preferred retailer.“Featuring a whopping 6 feet of fun, the music mat doesn't only feature piano, but lets you choose from 8 different built-in instruments!”

RESOURCES MENTIONED IN THIS EPISODEDravet Syndrome (aka “severe myoclonic epilepsy of infancy”)https://www.epilepsy.com/learn/types-epilepsy-syndromes/dravet-syndromehttps://www.dravetfoundation.orgChronic Fatigue Recovery Program: ANS Rewirehttps://ansrewire.com/Simon’s Podcast: Turning the Tableshttps://www.podpage.com/turning-the-tables/    Simon’s websitehttps://www.brandwithsimon.com/SIMON'S RECOMMENDED BOOKSA New Earth by Ekhart TolleThe Surrender Experiment by Michael A SingerEXCERPTS FROM THE INTERVIEWYou are welcome to share the wisdom from this episode. Please be sure to credit: “Ep. 9, Simon Ratcliffe, Courtesy of Wisdom Shared Podcast with Carole Blueweiss.”It isn't a straight line to recovery from Chronic Fatigue SyndromeWe're in the middle of COVID right now. There are many people experiencing very different symptoms and no one has the answer.To get through a chronic illness, you have to completely reframe what the idea of recovery is.It takes a long time for your brain to recondition itself or retrain itself around positive thoughts.Every time I had a negative thought, I would reframe it in my head.It was clear that a developmental delay would mean that she would need in a special school.Lot of kids with conditions have a lot of potential, but because of the resources needed to bring that out in a child, they end up settling for good average.Education is more geared around helping with independence, which is fine, but a lot of children like Francesca will not be able to live an independent life. People with special needs, need  to be categorized as important as any other diverse group.Recognize that the situation you are in, if you have a child with special needs, puts much greater pressure on you.We need to see individuals not labels.It took the chronic fatigue to enable me to completely re reboot my mental state, my life, my priorities, my thinking.Why don't we live life with rose-tinted spectacles on? Why is it a good idea to be painfully realistic about everything?

Rosemary Bushey currently lives in New Hampshire with her husband and two daughters, Lauren 16 and Amelia 13. She is a 49-year-old runner, coach, and vegan Instagram influencer. Rosemary was born in Columbia, South America and has lived in New York for most of her life. She is currently completing a master’s degree to work as a bilingual Clinical Mental Health Counselor. She is pursuing this degree because her older daughter was diagnosed with Obsessive-Compulsive Disorder (OCD) at age 14. Rosemary has always been passionate about food, fitness, and the body/mind connection. Two years ago, she adopted a vegan lifestyle, and is avidly exploring the connection between mental health and nutrition. She shares vegan recipes and gorgeous photos of the food she has prepared on her Instagram page, @simplyveggielicious. Lauren loves to write, draw, and sing.https://www.instagram.com/simplyveggielicious/Song credit: "idontwannabeyouanymore" by Billie Eilish, sung by Lauren Bushey RESOURCES MENTIONED IN THIS EPISODEFOUNDATIONSInternational OCD Foundationhttps://iocdf.org TREATMENT FACILITIESBradley Hospitalhttps://www.lifespan.org/centers-services/intensive-program-obsessive-compulsive-disorder Rogers Hospitalhttps://rogersbh.org McLean Hospital https://www.mcleanhospital.org HOUSING FOR FAMILIESRonald McDonald Househttps://www.rmhc.org APPROACHESIntegrative Medicinehttps://www.drweil.com/health-wellness/balanced-living/meet-dr-weil/what-is-integrative-medicine/https://www.mayoclinic.org/tests-procedures/complementary-alternative-medicine/about/pac-20393581https://health.usnews.com/health-conditions/heart-health/integrative-medicine/overview Cognitive Behavioral Therapyhttps://www.apa.org/ptsd-guideline/patients-and-families/cognitive-behavioralhttps://www.mayoclinic.org/tests-procedures/cognitive-behavioral-therapy/about/pac-20384610https://www.healthline.com/health/cognitive-behavioral-therapy Exposure Therapyhttps://www.apa.org/ptsd-guideline/patients-and-families/exposure-therapyhttps://www.goodtherapy.org/learn-about-therapy/types/exposure-therapyhttps://www.mayoclinic.org/medical-professionals/psychiatry-psychology/news/exposure-therapy-effective-for-pediatric-anxiety-and-ocd/mac-20429918 EXCERPTS FROM THE INTERVIEWYou are welcome to share the wisdom from this episode. Please be sure to credit: “Ep. 8, Rosemary Bushey, Courtesy of Wisdom Shared Podcast with Carole Blueweiss. QUOTES FROM LAUREN:I always struggled with my OCD, so I always knew something was wrong, but it was so normal for me that I was kind of used to it OCD feeds off of stress. So whenever I'm stressed out about something, the OCD just gets much worse.I always had urges to ritualize. And when I felt uncomfortable, I'd have to fix things a certain way.I had these fears of my family dying. If I didn't move something a certain way in my room, I couldn't leave my room until I fixed everything a certain way, which took a while. For the kids that are struggling with this, you know, trust your parents, they're trying to help you You have to help yourself and you have to work towards bettering yourself and you can't give up.Stop refusing to take other people's help. I was refusing to take my medicine because I was too scared. Even the smallest steps can make such a big difference. You have to think of the future you want for yourself. You have to think about how it's going to help you in the end. It might hurt now, but push yourself.It gives you more power over your mental illness by feeling free to talk about it with other people, like to be able to learn about it and inform others about it, and really just know everything about what you're going through.I feel like the foods that are in the vegan cuisine are much better for your mental health. QUOTES FROM ROSEMARY:When she was diagnosed with OCD, I had to jump through so many hoops in order to find help.A lot of her OCD started manifesting in the way her shoes needed to be in certain way.We had no clue that we were dealing with OCD… it was exhausting.She would come home and do homework for hours and hours in a way that wasn't normal. She kept erasing. If a letter wasn't completely perfect, she had to erase it and do it again. I kept seeing the compulsions but I didn't see the obsessions. The obsessions were hidden.As parents, the most difficult thing we had to deal with was feeling guilty. The feeling of guilt because I kept saying, “Oh my God, how could I ignore the signs?” I knew they were there, but she was functional. And all her doctors said, “there's no way you could have known. There's no way anybody could have known she had OCD,” but I kept blaming myself and saying, “Oh my God, I wish I would have found help before.”She was looking for me to repeat the same phrase in the same tone of voice exactly the same way I said it before. There were times that she needed to repeat or make me repeat things three times or five times.There was no way anybody could communicate with her. There was no conversation, no communication. She couldn't dress herself. She couldn't choose what to put on. She was overwhelmed by choosing what to wear. And then it got to a point where she couldn't help herself dress. She would be very stiff and we would have to dress her, but she couldn't help. She would scream and get into a panic and anxiety because she wanted her pants put on a certain way. But she couldn't move her legs. She had to be stiff. It was extremely weird, bizarre behavior. Then she couldn't brush her teeth because she wasn't supposed to move her arm.For Hispanic people, it is a huge stigma mental illness. They don't talk about mental illness. In this country too, there's a lot of stigma related to mental illness.Last year, I put her basically on a plant-based diet and its helping her and she feels better. She feels good about what she's putting in her body.She is so mature and so knowledgeable about her disorder. It really makes me proud.My beliefs were aligned with my nutrition, with my choices. As a parent, and I could say to any parent, we are the best advocates for our children. Just knowing other parents are going through the same or similar situations can be very comforting and can help a lot.

ABOUT BERIL TOKCANAfter studying graphic design in Milan and visual communication in Sydney respectively, Beril Tokcan returned to her homeland Turkey in 2003 and founded her design studio in Istanbul.She came across the Anat Baniel Method® NeuroMovement (ABMNM) in 2012, while in search for a method to help her son, who was diagnosed with PVL /CP due to premature birth.She completed the ABMNM Professional Training in 2015 and consecutively all the ABMNM Mastery Programs (for Children with Special Needs, for Vitality and Anti-Aging, and for High Performers). She also completed Kids Yoga, Yoga Therapy and Jeremy Krauss Approach trainings and participates in the ABMNM Professional Trainings as an assistant.She works with children and adults at her practise in Istanbul, offering private lessons, group classes and workshops, with the mission of transforming the impossible into possibie and making positive changes in people’s lives.Beril is the author of ‘I Am Free Now’.www.beriltokcan.comInstagram: beriltokcan@devinimAnat Baniel Method® NeuroMovement® Practitionerwww.beriltokcan.comwww.devinim.ist RECOMMENDED RESOURCES(list compiled by Beril)BOOKSAwareness Through Movement,  Moshe FeldenkraisHardwiring Happiness, Rick HansonHold Onto Your Kids, Dr.Gordon Neufold & Dr.Gabor MatéKids Beyond Limits, Anat BanielMove Into Lİfe, Anat BanielParenting from the Inside Out, Daniel Siegel and Mary HartzellPositive Discipline for Children with Special Needs, Jane Elsen, Steven Foster & Arlene RaphaelRising Strong, Brené BrownSoft Wired, Michael MerzenichThe Brain That Changes Itself, Norman DoidgeThe Brain’s Way of Healing, Norman DoidgeThe Whole Brain Child, Daniel Siege and Tina Payne BrysonTrain Your Mind, Change Your Brain, Sharon BegleyTrauma-Proofing Your Kids, Peter A.Levine, Maggie Kline HEALTHCARE PRACTITONERSDr.Paul Jordandrjordan@drpauljordan.nethttps://drpauljordan.godaddysites.com/Dr.Roy Nuzzo Overlook Hospital, Summit NJ973-306-9388video.popc@gmail.comDr.Joseph C. D’Amico212-757-6440Info@drjosephcdamico.comSPMLhttp://www.podopediatrics.net/spmlFacebook Group: SPML - Selective Percutaneous Myofascial LengtheningAnat Baniel415-847-1311scheduling@anatbanielmethod.comJudith Dackjudithdack@uptownstudio.ca416-481-2381Beril Tokcanwww.beriltokcan.comInstagram: beriltokcanEXCERPTS FROM THE INTERVIEWYou are welcome to share the wisdom from this episode. Please be sure to credit: “Ep. 7, Beril Tokcan, Courtesy of Wisdom Shared Podcast with Carole Blueweiss.”You have all these dreams about what's next in your life.. ... suddenly it's all washed away and you're left with a big unknown.The gap was getting larger and larger every day. Our doctors kept telling me .... “They were born prematurely. We should wait a little more.”There's that motherly instinct saying, “something is wrong,” but you're hoping it's all fine because the doctor is saying it's all fine.There should be a more humane way to connect with him and see where he's at and to help him get to the next step, not go 50 steps ahead. I had no idea what it could be, but I knew there should be a way so that’s when I started doing my research,I had no idea how much movement has influence on the brain's potential to learn and change it.It[ABMN] works in different ways with each child because each brain is unique.I was feeling very alone and isolated. I thought no one got what I was going through. I built these big walls around me and I just wanted to be inside with the two kids I just didn't want to have anything to do with the outside world.I started to see a psychologist. And one of the things that she told me really struck me. She said, “You have to put the oxygen mask to yourself first,” which I found out to be very true. I said out loud that I have a child with special needs. And that was the breaking point for me because before that, you know, of course I have a special needs child, but I couldn't verbalize it. The ABM training was wonderful because you could look into each other's eye and understand each other and feel each other without, without needing for words, it was such a safe place to be. I went to the[ABMN] training to learn the tools to help my son and other children, but I had no idea how much it would change me as a person. We need to see where the child is and offer different ways for him to figure out how to get to the next step.He's a child with confidence and determination and motivation because he figured things out for himself. And by me slowing down and by me connecting with him and by me giving him the space, he figured things out.At one point he left his walker and started taking steps. And there was more fluidity in his walk and he opened up his arms and he said, “I'm free now.”When he was diagnosed, we went to see a couple of neurologists and all of them basically gave similar answers of what he will never be able to do in life. How come they can speak so firmly about things that my son will never be able to do in life? He's only one year old. It's just that motherly instinct saying, I'm going to do everything in my power to help him improve his potential.Sports has been a part of our journey, a big part of our journey because that's where he likes to challenge himself and wants to play together with his friends. And I see that as the best therapy.Trust your intuition in whichever path you want to take. And do a lot of research. Not everything will be useful for your child, but find your own rhythm and pace and what works for you. Don’t wait for answers to come to you.No one has a magic wand. It's a long process and it can be hard. But it can also be joyful and fun. Just embrace it all and take care of yourself. I wish I had started taking care of myself and helping me heal earlier. Find parents that are going through similar journey and process because you do need someone to walk this path with. I don't believe in labels and I don't think we need words like special or unique or extraordinary. I think each child is unique and special and extraordinary..... By labeling them, you're pushing them outside of the circle. Be open enough to listen, but then listen to your intuition and let that be the guide in your decision-making process. The most important thing is that the child can learn and if they can learn, they can always learn more. 

You can follow Dr. Jill on Twitter @drjbtVisit Dr. Jill Bolte Taylor's websitehttp://drjilltaylor.comDr. Jill's Ted Talk, "My Stroke of Insight"https://www.ted.com/talks/jill_bolte_taylor_my_stroke_of_insightThe Harvard Brain Bankhttps://hbtrc.mclean.harvard.eduFifty Trillion Molecular Geniuses Musical CompositionCecelia Chorus of NY commissioned The Brothers Balliett for a musical composition, Fifty Trillion Molecular Geniuses, with texts drawn from Dr. Jill Bolte Taylor’s book and TED Talk My Stroke of Insight. The piece was performed at Carnegie Hall on Dr. Jill's 60th birthday.Read more: https://ceciliachorusny.org/updates-contact/brad-doug-balliett-composing-fifty-trillion-molecular-geniusesMoshe Feldenkrais and The Feldenkrais Method®The Feldenkrais Method® of somatic education was developed by Dr. Moshe Feldenkrais. It is a powerful  approach to improving life that uses gentle, mindful movement to bring new awareness and possibility into every aspect. The Feldenkrais Method is based on principles of physics, biomechanics, and an empirical understanding of learning and human development.Since how you move is how you move through life, these improvements will often enhance your thinking, emotional regulation, and problem-solving capabilities. Read more: https://feldenkrais.comAnat Baniel and NeuroMovement®Anat Baniel, a student of Moshe Feldenkrais, developed and evolved NeuroMovement® from  30+ years of  experience with thousands of clients using practical applications of brain plasticity principles. The Anat Baniel Method® approach is founded in neuroscience and the biodynamics of the human body, and utilizes movement and the 9 Essentials to create conditions for the brain to wake up and upgrade its own functioning.The Nine EssentialsEssential 1 – Movement with Attention; Wake up to LifeEssential 2 – Slow; Luxuriate in the Richness of FeelingEssential 3 – Variation; Enjoy Abundant PossibilitiesEssential 4 – Subtlety; Experience the Power of GentlenessEssential 5 – Enthusiasm; Turn the Small into the GreatEssential 6 – Flexible Goals; Make the Impossible PossibleEssential 7 – The Learning Switch; Bring in the NewEssential 8 – Imagination & Dreams; Create your LifeEssential 9 – Awareness; Thrive with True KnowledgeRead more about the Nine Essentials: https://www.anatbanielmethod.com/about/neuromovement/neuromovement-and-9-essentialsRecommended Reading:My Stroke of Insight by Dr. Jill Bolte TaylorWhole Brain Living by Dr. Jill Bolte Taylor (Available May 2021, published by Hay House)The Feldenkrais Method by Staffan Elgelid, Chrish Kresge, with forward by Jerry Karzen, this book includes  perspective from 26 leaders and experts in the Feldenkrais field. It explains the importance of learning through movement with the brain’s attention as a means for physical and cognitive improvement and transformation. (Available May, 2021, published by Handspring.) Pre-order at feldenkraismovementbook.com to receive 10% off and free shipping in the US/UK. Awareness Through Movement by Moshe FeldenkraisThe Potent Self by Moshe FeldenkraisKids Beyond Limits by Anat Baniel_______________________________Notable Quotes from This EpisodeYou are welcome to share the wisdom from this episode. Please be sure to credit: “Ep. 6, Dr. Jill Bolte Taylor, Courtesy of Wisdom Shared Podcast with Carole Blueweiss.”"How does our brain create our perception of reality?""I could not walk, talk, read, write, or recall any of my life. I became a complete infant in a woman’s body. I was minutes from death.""I knew nothing. I had no information in my left brain… I had no perception of my past. I was isolated completely in the present moment. It took eight years to recover all function of my left brain.""I was nothing but a breathing body in a bed. That’s how my mother described me.""I don’t use the term “victim” because I survived that day. I prefer that instead of calling people stroke victims—the victims died, the survivors survive—I encourage people to call us stroke survivors. It makes a difference. Words have power.""If you’re going to be a good teacher, you have to go to the level of the student.""When I experienced the stroke, I had incredible right brain ability. I was completely turned on to body language, physical language—all kinds of gifts of the right brain—far beyond the normal person. I could tell in an instant if someone was telling the truth or telling a lie, because the cells that could distract me from being able to tell that someone was telling a lie were turned off.""I was very blessed. And this is one of the greatest gifts Gigi gave me. From day to day, I couldn’t remember yesterday or the day before because all I had was the present moment. She kept reminding me of what I couldn’t do yesterday. She was enthusiastic about my ability to get better.""Every step is a celebration. I had to stay focused on what I could do, not on what I couldn’t do. So much of our society focuses on the disability. Let’s focus on and enthusiastically say YAY to what’s working, and then 'what’s the next thing I can learn?'" WISDOM SHARED PRODUCTION TEAM:Produced by: Dr. Carole BlueweissAudio Engineering: Keith PyattMarketing and Promotion: Coby Green-Rifkin

FOR MORE INFORMATION:The 5P- Society (Cri du Chat)https://fivepminus.org/Cri du Chat Society Facebook Pagehttps://www.facebook.com/CriDuChatSocietyNational Organization for Rare Disorders https://rarediseases.org/rare-diseases/cri-du-chat-syndrome NOTABLE QUOTES FROM THIS EPISODE:You are welcome you to share the wisdom from this episode. Please be sure to credit: “Ep. 5, Damas Manderson, Courtesy of Wisdom Shared Podcast with Carole Blueweiss.”22:30 “When you’re hurt, you hurt others”30:59 “If empathy was the first point of reference for people, that would go a long way”39:07 - “A handful of special needs parents can fall into the category of where the normal children become caregivers whether they want it or not.”44:00: “What does it cost me? It’s only cost me money. What have I gained? A loving wholesome family, with a value that we will carry forever. My family is my legacy.”50:00 “There’s not an instruction book for how to be an effective special needs mother and father or husband and wife.”51: “Kindness doesn’t mean weakness. Kindness means strength.” EDITOR’S NOTE: Damas and Dina Manderson intend to start a foundation for their daughter, Kennedy Rose. These episode notes will be updated to include foundation information when it is available. (1/9/2021)  

ABOUT PARIA HASSOURIWebsite: www.PariaHassouri.comBook: Found in TransitionFacebook: www.facebook.com/paria.hassouriInstagram: @lapariaTwitter: @pariahassouri LINKS FROM INTERVIEW https://themoth.org/storytellers/cybele-abbett

ABOUT MARA YALEWebsite: www.marayale.comFacebook Page: www.facebook.com/yalemaramInstagram: @maramyaleBlog: www.marazoemia.netABOUT REGAME-VR LAB AT NORTHEASTERN UNIVERSITYResearch in the Rehabilitation Games and Virtual Reality Laboratory at Northeastern University focuses on the sustainable, evidence-based integration of virtual reality (VR) and active video games into rehabilitation practice for children with neuromotor impairments such as cerebral palsy. Website: www.web.northeastern.edu/regamevrlabFacebook: www.facebook.com/regamevrlabTwitter:@regamevr  Audio from ReGame-VR lab interviews produced by Benjamin Bertsch and Adam Fischer.LINKS FROM INTERVIEW I-ACQUIRE: www.nihstrokenet.org/i-acquire/family-resourcesI-ACQUIRE clinical trial for constraint induced movement therapy: www.clinicaltrials.gov/ct2/show/NCT03910075Cerebral Palsy Soccer: www.cpsoccer.usHand in Hand Parenting: www.handinhandparenting.orgThe Reading Promise: www.makeareadingpromise.comDr. Karen Pape: www.karenpapemd.comChildren's Hemiplegia and Stroke Association (CHASA): www.chasa.orgInternational Alliance for Pediatric Stroke: www.iapediatricstroke.orgSheryl Field, Field Center for Integrated Development: www.thefieldcenter.orgFeldenkrais: www.feldenkrais.comSomatic Experiencing: www.traumahealing.org/about-us