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Progressive supranuclear palsy and corticobasal syndrome are closely related neurodegenerative disorders that present with progressive parkinsonism and multiple other features that overlap clinically and neuropathologically. Early recognition is critical to provide appropriate treatment and supportive care. In this episode, Teshamae Monteith, MD, FAAN speaks with Nikolaus R. McFarland, MD, PhD, FAAN, author of the article “Progressive Supranuclear Palsy and Corticobasal Syndrome” in the Continuum® August 2025 Movement Disorders issue. Dr. Monteith is the associate editor of Continuum® Audio and an associate professor of clinical neurology at the University of Miami Miller School of Medicine in Miami, Florida. Dr. McFarland is an associate professor of neurology at the University of Florida College of Medicine at the Norman Fixel Institute for Neurological Diseases in Gainesville, Florida. Additional Resources Read the article: Progressive Supranuclear Palsy and Corticobasal Syndrome Subscribe to Continuum®: shop.lww.com/Continuum Earn CME (available only to AAN members): continpub.com/AudioCME Continuum® Aloud (verbatim audio-book style recordings of articles available only to Continuum® subscribers): continpub.com/Aloud More about the American Academy of Neurology: aan.com Social Media facebook.com/continuumcme @ContinuumAAN Host: @headacheMD Full episode transcript available here Dr Jones: This is Dr Lyell Jones, Editor-in-Chief of Continuum. Thank you for listening to Continuum Audio. Be sure to visit the links in the episode notes for information about earning CME, subscribing to the journal, and exclusive access to interviews not featured on the podcast. Dr Monteith: Hi, this is Dr Teshamae Monteith. Today I'm interviewing Dr Nikolaus McFarland about his article on progressive supranuclear palsy and cortical basilar syndrome, which appears in the August 2025 Continuum issue on movement disorders. Welcome, how are you? Dr Farland: I'm great. Thank you for inviting me to do this. This is a great opportunity. I had fun putting this article together, and it's part of my passion. Dr Monteith: Yes, I know that. You sit on the board with me in the Florida Society of Neurology and I've seen your lectures. You're very passionate about this. And so why don't you first start off with introducing yourself, and then tell us just a little bit about what got you interested in this field. Dr Farland: I'm Dr Nicholas McFarlane. I'm an associate professor at the University of Florida, and I work at the Norman Fixel Institute for Neurological Diseases. I am a director of a number of different centers. So, I actually direct the cure PSP Center of Care and the MSA Center of Excellence at the University of Florida; I also direct the Huntington's clinic there as well. But for many years my focus has been on atypical parkinsonisms. And, you know, I've treated these patients for years, and one of my focuses is actually these patients who suffer from progressive supranuclear palsy and corticobasal syndrome. So that's kind of what this review is all about. Dr Monteith: You probably were born excited, but I want to know what got you interested in this in particular? Dr Farland: So, what got me interested in this in particular was really the disease and the challenges that's involved in it. So, Parkinson's disease is pretty common, and we see a lot of that in our clinic. Yet many times, roughly about 10 to 15% of my patients present with these atypical disorders. And they're quite fascinating. They present in different ways. They're fairly uncommon. They're complex disorders that progress fairly rapidly, and they have multiple different features. They're sort of exciting to see clinically as a neurologist. I think they're really interesting from an academic standpoint, but also in the standpoint of really trying to bring together sort of a team. We have built a multidisciplinary team here at the University of Florida to take care of these patients. They require a number of folks on that team to take care of them. And so, what's exciting, really, is the challenge of treating these patients. There are very limited numbers of therapies that are available, and the current therapies that we have often really aren't great and over time they fail. And so, part of the challenge is actually doing research. And so, there's actually a lot of new research that's been going on in this field. Recently, there's been some revisions to the clinical criteria to help diagnose these disorders. So, that's really what's exciting. The field is really moving forward fairly rapidly with a number of new diagnostics, therapeutics coming out. And hopefully we can make a real difference for these patients. And so that's what really got me into this field, the challenge of trying to treat these patients, help them, advocate for them and make them better. Dr Monteith: And so, tell me what the essential points of this article. Dr Farland: So, the essential points, really, of this article is: number one, you know, just to recognize the new clinical criteria for both PSP and corticobasal syndrome, the diagnosis for these disorders or the phenotypic spectrum has really expanded over the years. So, we now recognize many different phenotypes of these disorders, and the diagnosis has gotten fairly complicated. And so, one of the goals of this article was to review those new diagnostic criteria and the different phenotypic ways these diseases present. I wanted to discuss, also, some of the neuropathology and clinicopathological overlap that's occurred in these diseases as well as some of the new diagnostic tests that are available. That's definitely growing. Some of the new studies that are out, in terms of research and clinical trials. And then wanted to review some of the approaches for treatment for neurologists. Particularly, we're hoping that, you know, this article educates folks. If you're a general neurologist, we're hoping that recognizing these diseases early on will prompt you to refer these patients to specialty clinics or movement disorder specialists early on so they can get appropriate care, confirm your diagnosis, as well as get them involved in trials if they are available. Dr Monteith: And how has the clinical criteria for PSP and cortical basilar syndrome changed? Dr Farland: I think I already mentioned there's been an evolution of the clinical criteria for PSP. There's new diagnostic criteria that were recently published, and it recognizes the multiple clinical phenotypes and the spectrum of the disease that's out there, which is much broader than we thought about. Corticobasal clinical criteria are the Dr Armstrong criteria from 2013. They have not been updated, but they are in the works of being updated. But it does recognize the classic presentation of corticobasal syndrome, plus a frontal executive predominant and then a variant that actually overlaps with PSP. So, there's a lot more overlap in these two diseases than we originally recognized. Dr Monteith: And so, you spoke a bit about FTD spectrum. So why don't you tell us a little bit about what that is? I know you mentioned multiple phenotypes. Dr Farland: What I really want to say is that both PSP and corticobasal syndrome, they're relatively rare, and what- sort of as to common features, they both are progressive Parkinson disorders, but they have variable features. While they're commonly associated with Parkinson's, they also fit within this frontotemporal lobar spectrum, having features that overlap both clinically and neuropathologically. I just want folks to understand that overlap. One of this pathological overlap here is the predominant Tau pathology in the brain, an increasing recognology- recognition of sort of the pathological heterogeneity within these disorders. So, there's an initial description, a classic of PSP, as Richardson syndrome. But now we recognize there are lots of different features to it and there are different ways it presents, and there's definitely a lot of clinical pathological overlap. Dr Monteith: Why don't we just talk about some red flags for PSP? Dr Farland: Yeah, sure. So, some of the red flags for PSP and even corticobasal syndrome are: number one is rapid progression with early onset of falls, gait difficulty, falling typically backwards, early speech and swallow problems that are more prominent than you see in Parkinson's disease, as well as eye gaze issues. So, ocular motor features, particularly vertical gaze palsy. In particular what we talk about is the supranuclear gaze palsy, and one of the most sensitive features that we've seen with these is downgaze limitation or slowed downgaze, and eventually a full vertical gaze palsy and followed supranuclear gaze palsy. So, there's some of the red flags that we see. So, while we think about the lack of response to levodopa frequently as something that's a red flag for Parkinson's, there are many times that we see Parkinson's patients, and about a quarter of them don't really respond. There's some features that don't respond to levodopa that may not be so specific, but also can be helpful in this disease. Dr Monteith: And what about the red flags for cortical basilar syndrome? Dr Farland: So, for cortical basilar syndrome, some of the red flags again are this rapidly depressive syndrome tends to be, at least in its classical present presentation, more asymmetric in its presentation of parkinsonism, with features including things like dystonic features, okay? For limb dystonia and apraxias---so, inability to do a learned behavior. One of those red flags is a patient who comes in and says, my hand doesn't work anymore, which is something extremely uncommon that you hear in Parkinson's disease. Most of those patients will present, say, I might have a tremor, but they very rarely will tell you that I can't use my hand. So look out for that sign. Dr Monteith: And let's talk a little bit about some of the advances in the fields you mentioned, evolving biomarker and imaging capacities. So, how are these advances useful in helping us understand these conditions, especially when there's so much heterogeneity? Dr Farland: I might start by talking a little bit about some of the clinical criteria that have advanced. Why don't we start there and just discuss some of the advances? I think in PSP, I think, originally we had both probable and possible diagnoses of PSP, and the diagnostic criteria were basically focused on what was what's called “classical PSP” or “Richardson syndrome”. But now we recognize that there are multiple phenotypes. There's an overlap with Parkinsonism that's slower in progression and morphs into PSP, the classical form. There's a frontal behavioral variant where patients present with that frontal behavioral kind of thing. There's a speech-language variant that can overlap with PSP. So they have prominent speech language, potentially even apraxia speech. So, recognition of these different phenotypes is sort of a new thing in this field. There's even overlap with cortical basal syndrome and PSP, and we note that the pathology can overlap as well. So, I think that's one of the things that have changed over time. And these were- recently came out in 2017 in a new publication in the Movement Disorders Society. So, in terms of diagnostic tests as well---and there's been quite a bit of evolution---really still to date, our best diagnostic test is imaging. MRI is really one of our best tests currently. Currently blood tests, spinal fluid, there's new biomarkers in terms of skin… they're still in the research phase and not necessarily very specific yet. So, we rely heavily on imaging still; and for PSP, what we're looking for largely are changes in the brain stem, and particularly focused on the midbrain. So disproportionate midbrain atrophy compared to the pons and the rest of the midbrain is a fairly specific intensive sign for PSP. Whereas in MSA we see more of a pontine atrophy compared to the midbrain. So that can be really helpful, and there are lots of different new measurements that can be done. PET scans are also being used as well. And there are new PET markers, but they still remain kind of research-based, but are becoming more and more prevalent and may be available soon for potential use. Although there's some overlap with PET tracers with Alzheimer's disease and different Tau isoforms. So, something to be wary about, but we will be seeing some of these soon coming out as well. More kind of up-to-date things include things like the spinal fluid as well as even some of the skin biopsies. And I think we've heard some word of recent studies that have come out that potentially in the very near future we might actually have some Tau protein tests that we can look at Tau either in spinal fluid or even in a skin biopsy. But again, still remains research-based and, we still need more information as to whether these tests can be reproducible and how sensitive or specific they are. Dr Monteith: It sounds like, when really approaching these patients, still, it's a lot of back to the history, back to the clinical and some basic imaging that we should be able to identify to distinguish these types of patients, and we're not quite where we need to be yet for biomarker. Dr Farland: I totally agree with you. I think it starts, really, with the clinical exam and that's our main focus here; and understanding some of the new clinical criteria which are more sensitive, but also specific, too. And they're really useful to look at. So, I think reviewing those; patients do progress, following them over time can be really useful. And then for diagnosis, getting imaging if you suspect a patient has an atypical presentation of parkinsonism, to look for signs or features that might be specific for these different disorders. Dr Monteith: Why don't we take a typical case, a typical patient that you would see in clinic, and walk us through the thought process---especially, maybe they presented somewhat early---and the different treatment approaches to helping the patient, and of course their family. Dr Farland: Yeah, sure. So, a typical patient might be someone who comes in with, like, a three year history of progressive gait problems and falling. And let's say the patient says, I'm falling backwards frequently. They may have had, like, a rib fracture, or they hit their head once, and they're describing some speech issues as well. Now they're relying on a walker and family members saying they rarely let them be by themselves. And there may be some slowing of their cognitive function and maybe a bit of withdrawal. So that's a typical patient. So, the approach here is really, what are some of the red flags? I think already you hear a red flag of a rapidly progressive disease. So, Parkinson's disease patients rarely have frequent falls within the first five years. So, this is within three years or less. You're already hearing early onset of gait problems and falling, and particularly falling backwards rather than forwards as often Parkinson's disease patients do. You're hearing early speech problems and maybe a subtle hint of cognitive slowing and some withdrawal. So, a lot of things that sort of are red flags. So, our approach really would be examining this patient really closely. Okay? We'd be listening to the history, looking at the patient. One thing is that some of these patients come in, they may be in a wheelchair already. That's a red flag for us. If they're wearing sunglasses---sometimes we see that patients, they have photosensitivity and they're in a chair and they're wearing sunglasses---you take the glasses off and you look at their face and they have that sort of a facial stare to them---not just the masked face, but the stare---and their eyes really aren't moving. So, another kind of clue, maybe this is probably something atypical, particularly PSP is what I'm thinking about. So, the approach is really, do a thorough exam. I always recommend looking at eye movements and starting with volitional saccades, not giving them a target necessarily, but asking them to look up and then look down. And then particularly look at the speed of downgaze and whether they actually have full versions down, are able to do that. That's probably your most sensitive test for a patient who has PSP. Not the upgaze, which can be- upgaze impairment in older patients can be nonspecific. So, look for that down gaze. So, if I can get out one message, that's one thing that can be easily done and examined fairly quickly for diagnosis of these patients. And then just look for signs of rigidity, bradykinesia, maybe even some myelopraxia, and then look at their gait carefully so that there's a high suspicion. Again, if there's some atypical features, imaging is really important. So, my next step would be probably getting an MRI to evaluate whether- do they have brain somatrophy or other widespread atrophy or other signs? You need to think about your differential diagnosis for some of these patients as well. So, common things are common; vascular disease, you can't have vascular parkinsonism or even signs of NPH. Both of those can present with progressive gait difficulty and falls. So, the gait may look more like Parkinson's rather than ataxic gait that we see in classic PSP, but still they have early gait issues, and that can be a mimicker of PSP, So looking for both of those things in your imaging. Think about sort of autoimmune potentially causes. So, if they have a really rapid progressive cause, there are some rare autoimmune things. There have been recent reports of things like IgLON5, although there's limited cases, but we're doing more screening for some of those autoimmune causes. And then even some infectious causes like Whipples, that are rarely present like this. Okay? And have other signs and features. Dr Monteith: So, let's say you diagnose this patient with PSP and you're assessing the patients to see how you can improve their quality of life. So, what are some potential symptomatic managements that will help our patient? Dr Farland: I recommend for most all of these patients… while the literature indicates that many patients with PSP, and especially corticobasal syndrome, don't respond well to levodopa. So, the classic treatment for parkinsonism. However, we all recommend a trial of levodopa. These patients may respond partially to doses of levodopa, and we try to push the doses a bit higher. So, the recommended trial is usually a dose up to roughly 1000 milligrams of levodopa per day. And give it some time, at least two, if not actually three months of a trial. If not well-tolerated, you can back off. If there's no response at all or no improvement, then slowly back off and taper patients off and ask them to tell you whether they feel like they're actually worsening. So, many patients, sometimes, don't recognize the improvements, or family members don't recognize it until we actually taper them back off. And they may end up saying there are some other things that even recognize. Even some nonmotor benefits can be seen with levodopa. In some cases, we do keep them on levodopa, but levodopa's our best therapy for this. Dopamine agonists, MAO inhibitors, have all been sort of tried and they've been studied, but often don't really help or fail to help benefit these patients and could be fraught with some other side effects. I think many people do also turn to Amantadine as a treatment for Parkinson's, gait problems, freezing, if you see it in these disorders. Yet Amantadine is fraught with issues of side effects, including cognitive issues, and I think is not well-tolerated. But there are the rare patient who actually does respond to this or claims they respond to this. By and large, these patients relentlessly progress, unfortunately. So, beside treatment of other symptoms, I think it's really important to recognize that they require supportive cares and therapy. So, starting those early on and getting your allied healthcares kind of involved. So that includes people like physical, occupational therapy for the gait issues, the falls, occupational therapy for doing daily activities. Speech language pathology can be really a critical player for these because of the early speech and language issues, as well as swallow difficulties. Swallow is compared quickly in these patients. And so, we do recommend the screening evaluation, then often following patients either every six- or even annually, at least, with a swallow evaluation. And we recommend the fluoroscopic-guided kind of modified barium swallow for these patients. Dr Monteith: And how does that differ if, let's say, the patient had cortical basilar syndrome? What are some of the symptomatic treatments that would be high on your consideration? Dr Farland: So actually, these patients also have a very similar approach, and they often have some overlapping features. Maybe a little bit of difference in terms of the level of apraxia and some dystonic features that you see in corticobasal syndrome. So, as I mentioned earlier that these patients have a more typ- when they present, typically have a more asymmetric presentation. And one of the biggest issues is this limb apraxia. They may have abnormal movements as well as, like, the alien limb-type phenomena as well. So, the focus of therapy, while similar in the sense we focus on the parkinsonism, I do always try levodopa and try to ramp up the doses to see if it benefits. It does often fail, but it's definitely worth trying. The other focus of these patients is trying to treat symptoms. Dystonia, those features… in some cases, we can help; if it's painful or uncomfortable, muscle relaxants can be used. If it's vocal, things like Botox can be really helpful. Often times it is more palliative than actually restorative in terms of function, but still can be really helpful for patients who ask about pain and discomfort and trying to treat. And then of course, again, the focus on our supportive care. We need to build that network and build that team of folks, the therapists, the physical, occupational, and the speech therapist to help them. If they have language problems---like either in PSP or corticobasal---I'll also include my request to a speech language pathologist to work on cognitive function. That's a special, additional thing you have to ask for and then specifically request when you make a referral to a speech language pathologist. Dr Monteith: That is so important. I think keeping the simulation, keeping the social support, and I would probably guess that you would also include screening for sleep and mood disorder. Dr Farland: Absolutely. Mood disorders are really big in these diseases. Patients are suffering terribly. You do hear about labile mood in both of these diseases, particularly PSP; and even what's called pseudobulbar palsy, where the mood is not always congruent with the affect. So they may laugh or cry inappropriately, and particularly the crying can be very disturbing to family and caregivers to see that. And so, treating those things can be really important. So always asking about the mood issues. Depression in particular is something that we're very sensitive about, and there is a higher incidence of suicidal ideations. Asking about that and feeling and making sure that they are in a safe environment can be really important. Dr Monteith: Thank you so much. Dr Farland: Thank you. Dr Monteith: Today I've been interviewing Dr Nikolaus McFarland about his article on progressive supranuclear palsy and cortical basilar syndrome, which appears in the August 2025 Continuum issue on movement disorders. Be sure to check out Continuum Audio episodes from this and other issues, and thank you to our listeners for joining today. Dr Monteith: This is Dr Teshamae Monteith, Associate Editor of Continuum Audio. If you've enjoyed this episode, you'll love the journal, which is full of in-depth and clinically relevant information important for neurology practitioners. Use the link in the episode notes to learn more and subscribe. AAN members, you can get CME for listening to this interview by completing the evaluation at continpub.com/audioCME. Thank you for listening to Continuum Audio.
The Caregiver's Journal hosted by Lance A. Slatton with Cindy (PT) & Christina (ST) Hardin-Weiss. The Caregiver's Journal is the show where we are sharing the caregiving experiences, stories, and wisdom of family caregivers. Chapter 15 - "Caregiving Love": About Mary Whitehead: Mark & I have been partners in life since our first date, a Heart concert, in 1978 followed by our marriage in 1979. Together we raised two children, and along the way we helped care and provide for parents & grandparents throughout their illnesses and aging in place or in senior living centers. I call myself a care partner vs. caregiver because Mark does not need my assistance for everyday tasks. We both use our strengths that complement each other on this path with Parkinson's and several other chronic illnesses he lives with. My late mother was my inspiration. In my mid-teens I watched her, over the course of two years, lovingly care for my dying father (lung cancer). I could not have had a better, in-home example of someone who did everything, including care for him, with love. I am married to the most wonderful man who insisted that my mom live with us for what totaled the last 12 years of her life so that she could have a comfortable life with no expenses and be cared for by us after having a massive heart attack two years before she passed away. When Mark was 47, as we became empty nesters and were poised to live out some dreams that were not feasible during our first 2+ decades together, a diagnosis of young onset Parkinson's Disease brought our hopes, plans, and his career to a screeching halt. But it couldn't completely stop this incredible human being, artist, musician/composer, man of many hobbies and a higher math maniac. I like to tease him about trying to share multi-page equations with me for discussion. Side note: he even took an online math course through MIT and I insisted that he buy one of their hoodies to wear proudly. There is so much to Mark that we could never cover in one conversation but rather than dwell on the PD, he prefers to pursue and concentrate on what he CAN do. We cultivate humor and wit in our relationship. That's where “Tenacious M” - my care partner/gansta moniker comes from. I combine it with my Cornermam enthusiasm to encourage Mark's boxing workouts (excellent for PD) and – like a beagle in a brush pile - I pursue every challenge face head on, whether it's an insurance or pharmacy snafu, etc. Together, we face every aspect of living with PD. And we are both are dedicated PD research participants at Washington Univ., St. Louis, MO, also the location of Mark's neuro, Dr. Joel Perlmutter (definitely the top doc). I, along with two of our friends are in the non-PD control group. We all have pledged to donate our brains at the end of our lives for PD research. In 2013, inspired by a Parkinsons Foundation resource kit, we created a PD Awareness & Research fundraising blitz, raising nearly $3k for Dr. P's research. Friends, family & my coworkers held Pancakes for PD, Dine-out nights, a proclamation by our city mayor, and, among many other activities, we raffled a beautiful quilt that Mark & I designed, and I did the hand-embroidery. Like the motto in our Parkinson's & Dystonia private FaceBook group, we will never give up. And I'd like to credit the group's founder/lead admin, Erika, for creating a safe and supporting space for people with PD and the caregivers & care partners.
My guest is Dr. Sergiu Pașca, MD, professor of psychiatry and behavioral sciences at Stanford University. We discuss the biology and genetics of autism, why autism diagnoses are increasing and recent progress in using stem cells to understand and treat profound autism and other brain disorders. Dr. Pașca explains “organoids and assembloids”—human stem cell–derived tools he pioneered to study, treat and cure complex brain diseases. We also discuss ethical and safety issues with using gene editing and stem cells in humans. Read the episode show notes at hubermanlab.com. Thank you to our sponsors AG1: https://drinkag1.com/huberman David: https://davidprotein.com/huberman Helix: https://helixsleep.com/huberman BetterHelp: https://betterhelp.com/huberman Function: https://functionhealth.com/huberman Timestamps (00:00) Sergiu Pașca (02:08) Autism Spectrum Disorder, Incidence, Genetics (07:16) Is Autism More Common in Males? (09:35) Sponsors: David & Helix Sleep (11:56) Eye Contact in Babies, Fever; Proposed Causes of Autism; Genes (18:48) Genetic or Idiopathic Autism Diagnoses, Timothy Syndrome (21:37) Rise in Autism Diagnoses (26:46) Cause, Correlation & Neurological Disease; Schizophrenia, Do Vaccines Cause Autism? (31:34) Global Increase in Autism; Gene Therapy, CRISPR, Follistatin (41:05) Sponsors: AG1 & BetterHelp (43:41) Stem Cells, Ethics, Yamanaka Factors, Human Stem Cell Models (52:03) Umbilical Stem Cells; Stem Cell Injections & Dangers, Autistic Kids (59:30) Organoids, Modeling Brain Development, Intrinsic Development Timer (1:12:22) Assembloids, Brain Cell Migration & Circuit Formation, Self-Organization (1:21:22) Four-Part Assembloid, Sensory Assembloid, Pain Conditions (1:25:45) Sponsor: Function (1:27:33) Future Medical Therapies, Cell Banking, Immortalize Tissues, Rejuvenate Cells (1:34:56) Assembloids & Ethics, Importance of Nomenclature, Science Collaboration & Self-Correction (1:45:38) Cell Transplantation & Ethics, Timing (1:55:05) Genetic Testing for Parents, Genetic Penetrance (2:02:36) Assembloids, Timothy Syndrome, Epilepsy, Schizophrenia, Dystonia (2:14:30) Scientific Career, Walking, Art, Medical School (2:20:44) Zero-Cost Support, YouTube, Spotify & Apple Follow & Reviews, Sponsors, YouTube Feedback, Protocols Book, Social Media, Neural Network Newsletter Disclaimer & Disclosures Learn more about your ad choices. Visit megaphone.fm/adchoices
In part two of this two-part episode of the Brain & Life Podcast, co-host Dr. Daniel Correa speaks with internationally bestselling author Liz Nugent, who shares her journey as a writer and her experiences living with dystonia. Liz discusses her experience with Deep Brain Stimulation and the relationship between her writing and her dystonia diagnosis. Dr. Correa is then joined by world-renowned neurologist and movement disorders specialist Dr. Alfonso Fasano, Chair in Neuromodulation at the University of Toronto and a neurologist at Toronto Western Hospital. Dr. Fasano explains Deep Brain Stimulation and upcoming research for dystonia. Additional Resources Liz Nugent Dystonia Overview Speaking Up About Dystonia Other Brain & Life Podcast Episodes on Similar Topics Billy McLaughlin on Life as a Musician with Focal Dystonia Rogers Hartmann on Beating Dystonia Self-Discovery and The Lost Voice with Songwriter Greta Morgan We want to hear from you! Have a question or want to hear a topic featured on the Brain & Life Podcast? Record a voicemail at 612-928-6206 Email us at BLpodcast@brainandlife.org Social Media: Liz Nugent @liznugentwriter; Dr. Alfonso Fasano @al_fasao Guests: Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD
In part one of this two-part episode of the Brain & Life Podcast, co-host Dr. Daniel Correa speaks with internationally bestselling author Liz Nugent, who shares her journey as a writer and her experiences living with dystonia. Liz discusses her early career in theater and television and highlights the importance of advocacy, awareness, and storytelling. Dr. Correa is then joined by world-renowned neurologist and movement disorders specialist Dr. Alfonso Fasano, Chair in Neuromodulation at the University of Toronto and a neurologist at Toronto Western Hospital. Dr. Fasano explains how the different types of dystonia present and delves into treatment options. Tune in next week to hear about Deep Brain Stimulation and upcoming research. Additional Resources Liz Nugent Dystonia Overview Speaking Up About Dystonia Other Brain & Life Podcast Episodes on Similar Topics Billy McLaughlin on Life as a Musician with Focal Dystonia Rogers Hartmann on Beating Dystonia Self-Discovery and The Lost Voice with Songwriter Greta Morgan We want to hear from you! Have a question or want to hear a topic featured on the Brain & Life Podcast? Record a voicemail at 612-928-6206 Email us at BLpodcast@brainandlife.org Social Media: Liz Nugent @liznugentwriter; Dr. Alfonso Fasano @al_fasao Guests: Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD
Dr. Mitra Afshari interviews Drs. Patricia Krause and Andrea Kühn on the results of a 10-year prospective follow-up study of a multicenter trial of GPI-DBS in isolated generalized and segmental dystonia. Together they discuss motor, non-motor, and safety outcomes, as well as the strong and stable long-term improvements in dystonia from pallidal DBS. Further, they provide their expert insights on the common themes with respect to treatment failure and the critical need for a personalized approach.
In this episode of Curing with Sound, we speak with Shiro Horisawa, MD, Director of Stereotactic and Functional Neurosurgery at Tokyo Women's Medical University, who discusses innovative applications of focused ultrasound technology for treating dystonia and other movement disorders. Dr. Horisawa shares insights from his extensive clinical experience, including over 1,500 stereotactic brain surgeries, and how focused ultrasound offers patients a noninvasive alternative to conventional treatments. Dr. Horisawa also details his clinical trial using focused ultrasound for cervical dystonia, a neurological disorder causing involuntary muscle contractions in the neck that can lead to abnormal head postures and significant pain. This Foundation-funded trial demonstrated an average improvement of 43% in symptoms six months after treatment, and no serious treatment-related complications. Discussion highlights: Noninvasive Precision Treatment: Focused ultrasound offers patients the benefits of traditional treatments without incisions or implanted devices, making it an attractive option for those resistant to conventional surgical approaches. Clinical Trial Results and Unexpected Benefits: Discover the outcomes of Dr. Horisawa's cervical dystonia trial and the surprising improvements in comorbid conditions like anxiety and hypertension that suggest broader applications for the technology. Hand Dystonia Research: Dr. Horisawa discusses his upcoming clinical trial for hand dystonia, a condition that can significantly impact the daily activities of individuals who rely on fine motor skills, particularly musicians, writers, and athletes. EPISODE TRANSCRIPT ---------------------------- QUESTIONS? Email podcast@fusfoundation.org if you have a question or comment about the show, or if you would you like to connect about future guest appearances. Email info@fusfoundation.org if you have questions about focused ultrasound or the Foundation. FUSF SOCIAL MEDIA LinkedIn X Facebook Instagram TikTok YouTube FUSF WEBSITE https://www.fusfoundation.org SIGN UP FOR OUR FREE NEWSLETTER https://www.fusfoundation.org/newsletter-signup/ READ THE LATEST NEWSLETTER https://www.fusfoundation.org/the-foundation/news-media/newsletter/ DOWNLOAD "THE TUMOR" BY JOHN GRISHAM (FREE E-BOOK) https://www.fusfoundation.org/read-the-tumor-by-john-grisham/
Prof. Marina de Koning-Tijssen interviews Prof. Kathryn Peall about her expertise on a topic that lies at the heart of her work: Myoclonus dystonia. We'll hear her insights on both the motor and non-motor challenges faced by patients, and how deep brain stimulation is reshaping treatment possibilities.
Moderator: Nihat Mustafayev (Istanbul, Türkiye)Guest: Dr Anna Castagna (Milano, Italy) This episode explains how ultrasound-guided botulinum toxin injections are performed in patients with dystonia. Mustafayev and Castagna discuss who benefits most from this method and why it is considered a safe and effective approach in clinical practice.eanCampus access for Associate Members: If you are a member of a National Neurological Society in Europe, you are most likely already an Associate Member of the EAN and have an account for the eanCampus. If you have provided your email address to your National Neurological Society, it should already be in our database. Here is how you can access the eanCampus as an Associate Member:1. Enter the eanCampus2. Click on the Log In Button3. Log in with your MyEAN credentials and make use of the ‘forgot password'-functionality if necessaryIf you have trouble logging in, please get in contact with our Membership department (membership@ean.org) to cross-check if you are listed as an Associate Member to get access to eanCampus.
In this special World Voice Day episode, we're joined by Scott Flanagan and Kimberly Kuman for a shared conversation about advocacy, creativity, and living with voice disorders.Scott is a nationally known quilting artist, author, and board member of Dysphonia International who lives with laryngeal dystonia. Kim is the Executive Director of Dysphonia International and a longtime patient advocate. Together, they reflect on how voice disorders shape identity—and how advocacy can become a voice of its own.Tune in as we explore what it means to truly empower your voice, and why awareness and community matter more than ever.
Journalist and author Sonya Voumard on the rare neurological condition that has stalked her since a family tragedy during her childhood.Sonya Voumard was on the precipice of teen hood when her father suddenly and unexpectedly died.In the months following his death, Sonya developed a tremor in her right hand, not dissimilar to the shaking she sometimes noticed in her father when he was cutting the top off her boiled egg at breakfast.The tremor got worse as she got older, but working late nights as a dogged journalist, fuelled by coffee and nicotine, it almost became a badge of honour for Sonya.One day, though, a terrifying moment while driving set her off on a decades-long quest through Australia's medical system.This episode of Conversations explores disability, neurological condition, brain surgery, experimental medicine, grief, untimely death, death of a father, journalism, Port Arthur massacre, Mabo, Melbourne, substance abuse, alcohol, shaking, Parkinson's, being queer, unexplained medical anomalies, neurosurgeon, neuroscience, St Vincent's hospital, writing, books, memoir, Dystonia, essential tremor, familial tremor, MS, multiple sclerosis, medical system, medicare, public versus private patients.Tremor: a movement disorder in a disordered world is published by Finlay Lloyd.Learn more about dystonia from the Dystonia Network of Australia.
durée : 00:30:06 - " Dystonia " de Fabien Touchard - par : Anne Montaron - La création de cette semaine est signée Fabien Touchard. C'est un concertino pour piano et ensemble écrit sur mesure pour le pianiste Sélim Mazari et l'Ensemble Les Apaches. - réalisé par : Olivier Guérin
durée : 00:30:06 - " Dystonia " de Fabien Touchard - par : Anne Montaron - La création de cette semaine est signée Fabien Touchard. C'est un concertino pour piano et ensemble écrit sur mesure pour le pianiste Sélim Mazari et l'Ensemble Les Apaches. - réalisé par : Olivier Guérin
Hannah Diviney is one of the most powerful people in pop culture. At just 25 years old, the author, advocate, and actor hasn’t just called out Lizzo for using an ableist slur—she also took on Queen B herself. And she succeeded on both fronts. Which, once you get to know her, isn’t surprising at all. In our Vulnerabilitea House, Hannah reflects on the questions: “How do you see yourself? Is it the same way your loved ones see you?” Answering with incredible vulnerability, Hannah shares how her relationship with her disability has evolved over time and what it was like growing up in a world where the Paralympics seemed like the only visible marker of success. We talk to Hannah about being a part of intimate television history, and Ryan, the love doctor, Shelton manifests a Brad (or Stewie, or Chris, or Michael-Angelo) in her future. Hannah, we are so desperate to be your friend. To watch this full episode on YouTube, click here: https://bit.ly/41vzALg
Dr. Jeff Ratliff delves into the common causes of acquired dystonia and highlights evidence-based treatment strategies for effective management.
Recorded at the 2024 ITG conference in Anaheim, Greg Spence and Julie Baxes discuss their experiences with focal dystonia, a neurological condition that affects musicians. Julie shares her "near-recovery" journey from full-on focal dystonia, detailing the struggles and triumphs in rediscovering her musical abilities with the help of Greg's structured teaching approach. They explore the steps required for overcoming focal dystonia, touching on the importance of stillness, error detection, and positive self-talk. Additionally, they emphasize the need for greater awareness and support within the musical community to address and treat this condition effectively.Episode highlights:01:16 Julie's Journey with Focal Dystonia01:37 Greg's Teaching Approach03:32 The Mystery to Mastery Program05:23 Understanding Stillness and Anxiety13:30 Julie's Personal Struggles34:59 Identifying the Error and Initial Reactions35:58 The Challenge of Stillness and Performer Mode36:35 The Importance of Closing Eyes in Therapy38:16 Moving Past Focal Dystonia: The Process39:24 Individual Factors and Strategies for Recovery40:47 The Error Trilogy: Detection, Rejection, Correction41:52 Technical Steps and Psychological Challenges50:12 The Role of Honesty and Community Support54:59 Distinguishing Focal Dystonia from Performance Anxiety57:07 Advice for Preventing Focal Dystonia01:05:42 Raising Awareness and Final ThoughtsResources Mentioned:mysterytomastery.comYou've been listening to Trumpet Dynamics, telling the story of the trumpet, in the words of those who play it. To learn more about the show, and to join the Trumpet Dynamics tribe, visit us on the web at trumpetdynamics.com.And be sure to tap the subscribe button on your phone so you're always up to date with new episodes as they release.Thank you for listening!
Renzo Huber is a staff scientist at NIH. We talk about his work on layer-fMRI: what it is, how Renzo got into it, how to do it, when it makes sense to do it, what the future holds, and much more.Support the show: https://geni.us/bjks-patreonTimestamps0:00:00: How Renzo got into high-resolution fMRI0:11:28: The difference between 3T and 7T fMRI0:22:46: Is a bigger fMRI scanner always better?0:33:35: Layer-fMRI0:56:28: For what types of research is layer-fMRI most useful?1:02:35: How to do layer-fMRI and make it reproducible1:19:21: The future of layer-fMRI1:27:02: A book or paper more people should read1:30:37: Something Renzo wishes he'd learnt sooner1:33:11: Advice for PhD students/postdocsPodcast linksWebsite: https://geni.us/bjks-podTwitter: https://geni.us/bjks-pod-twtRenzo's linksWebsite: https://geni.us/huber-webGoogle Scholar: https://geni.us/huber-scholarTwitter: https://geni.us/huber-twtBen's linksWebsite: https://geni.us/bjks-webGoogle Scholar: https://geni.us/bjks-scholarTwitter: https://geni.us/bjks-twtReferences and links mentionedEpisode with Peter Bandettini: https://geni.us/bjks-bandettiniEpisode with Emily Finn: https://geni.us/bjks-finnRenzo's blog about layer fMRI: https://layerfmri.com/YouTube channel on layer fMRI: https://www.youtube.com/@layerfmri/Bastos, ... & Friston (2012). Canonical microcircuits for predictive coding. Neuron.Bollmann & Barth (2021). New acquisition techniques and their prospects for the achievable resolution of fMRI. Progress in Neurobiology.Boulant, ... & Le Bihan (2024). In vivo imaging of the human brain with the Iseult 11.7-T MRI scanner. Nature Methods.Finn, ... & Bandettini (2019). Layer-dependent activity in human prefrontal cortex during working memory. Nature Neuroscience.Feynman (1985). "Surely you're joking, Mr. Feynman!": adventures of a curious character.Haarsma, Kok & Browning (2022). The promise of layer-specific neuroimaging for testing predictive coding theories of psychosis. Schizophrenia Research.Huber, ... & Bandettini (2017). High-resolution CBV-fMRI allows mapping of laminar activity and connectivity of cortical input and output in human M1. Neuron.Huber, ... & Möller (2019). Non-BOLD contrast for laminar fMRI in humans: CBF, CBV, and CMRO2. Neuroimage.Huber, ... & Bandettini (2020). Sub-millimeter fMRI reveals multiple topographical digit representations that form action maps in human motor cortex. Neuroimage.Huber, ... & Kronbichler (2023). Evaluating the capabilities and challenges of layer-fMRI VASO at 3T. Aperture Neuro.Huber, ... & Horovitz (2023). Laminar VASO fMRI in focal hand dystonia patients. Dystonia.Persichetti, ... & Martin (2020). Layer-specific contributions to imagined and executed hand movements in human primary motor cortex. Current Biology.Polimeni, ... & Wald (2010). Laminar analysis of 7 T BOLD using an imposed spatial activation pattern in human V1. Neuroimage.
Chronic pain and physical limitations can feel unchangeable, but what if the body and mind had the power to heal beyond expectation? Today, Emily Rieker shares her remarkable journey of overcoming a seven-year struggle with dystonia through Hannah Somatic's practice. Emily not only regained function in her hand but experienced profound transformations in her overall well-being. Her story demonstrates the remarkable capacity of the nervous system to change and heal, even after years of apparent "stuckness." Listen to discover how embracing body-mind awareness can unlock new levels of freedom and healing. In this episode, Emily Rieker shares: - Her seven-year journey with dystonia and how she regained function. - The mind-body connection's role in physical and emotional healing. - The unexpected benefits of somatic work, like improved relationships. - Challenges with traditional medical approaches and misdiagnosis. - How viewing the body as a dynamic system aids holistic healing. - How physical improvements extend beyond hand function to whole-body mobility and tension release. - Encouragement to explore the potential for personal transformation through somatic movement. And so much more! Follow Aimee Takaya on: IG: @aimeetakaya Facebook: Aimee Takaya Learn more about Aimee Takaya, Hanna Somatic Education, and The Radiance Program at www.freeyoursoma.com. --- Support this podcast: https://podcasters.spotify.com/pod/show/aimee322/support
From philosophy student and activist to pioneer in early childhood intervention approaches for therapists, Karen Kangas takes us on a journey of developing clinical excellence. She is an occupational therapists with over 50 years of experience, specializing in pediatrics, seating, and augmentative and alternative communication (AAC). She has particular knowledge and expertise in working with children with significant disabilities, particularly those with dystonia and dystonic cerebral palsy. Karen beautifully bridges the gap between ‘old school' hands on approaches and a more contemporary hands-off focus on participation and real-life activities and engagement. We cover seating and positioning, standing, walking and appropriate equipment use, developing clinical skills, the magic of the barrier vest and understanding movement patterns. You'll find links to everything we discussed at https://www.wiredondevelopment.com Enjoy!
From philosophy student and activist to pioneer in early childhood intervention approaches for therapists, Karen Kangas takes us on a journey of developing clinical excellence. She is an occupational therapists with over 50 years of experience, specializing in pediatrics, seating, and augmentative and alternative communication (AAC). She has particular knowledge and expertise in working with children with significant disabilities, particularly those with dystonia and dystonic cerebral palsy. Karen beautifully bridges the gap between ‘old school' hands on approaches and a more contemporary hands-off focus on participation and real-life activities and engagement. We cover seating and positioning, standing, walking and appropriate equipment use, developing clinical skills, the magic of the barrier vest and understanding movement patterns. You'll find links to everything we discussed at https://www.wiredondevelopment.com Enjoy!
Intro After brain injury, some of us are left with limbs and bodies that no longer function the way we are used to. Others have neurologic disorders that do something similar. One condition that does this is called dystonia. Dystonia is a movement disorder that causes muscles to spasm and contract resulting in abnormal postures, twisting, and repetitive movements. In this week's episode, Margaux Galli, the leader of the NYC Dystonia Support Group provides education on dystonia sharing her lived experience with the condition. She offers resources for those suffering with the condition along with information on how to join the support group. Listen to learn more!SummaryIn this episode, Margaux Galli, a member of a dystonia advocacy group, shares her experience living with dystonia, a movement disorder. She discusses the symptoms and causes of dystonia, including involuntary movements, abnormal postures, and tremors. Margaux emphasizes the importance of finding a specialist who listens and understands the condition, as well as exploring different treatment options such as Botox injections and physical therapy. She also highlights the value of peer support and the role of peer-run organizations in providing patient-centered care. Margaux's advocacy work focuses on raising awareness and creating a community for individuals with dystonia. The conversation covers various topics related to dystonia, including the role of physiatrists in treatment, the experience of pain, the challenges of researching complementary therapies, the importance of self-advocacy and support networks, and the impact of dystonia on relationships and identity. The most common theme that arises is the feeling of isolation among individuals with dystonia. Margaux encourages people to join support groups and find healing communities where their voices can be heard.Keywordsdystonia, movement disorder, involuntary movements, abnormal postures, tremors, specialist, treatment options, Botox injections, physical therapy, peer support, peer-run organizations, patient-centered care, advocacy, dystonia, physiatrists, treatment, pain, complementary therapies, self-advocacy, support networks, isolationTakeaways· Dystonia is a movement disorder characterized by involuntary movements, abnormal postures, and tremors.· Finding a specialist who listens and understands the condition is crucial for effective treatment.· Treatment options for dystonia include Botox injections and physical therapy.· Peer support and peer-run organizations play a vital role in providing patient-centered care and creating a sense of community for individuals with dystonia. Physiatrists can help with joint issues and provide injections, but specialized neurospecialists may be needed for certain treatments.· Dystonia can be a painful condition, and pain medication may not always be effective. Medications for mood can also help with involuntary movement.· When researching complementary therapies, it's important to approach alternative treatments safely and consider the risk-benefit ratio.· Self-advocacy and finding a supportive network are crucial for individuals with dystonia.· Dystonia can lead to feelings of isolation, and joining support groups can provide a sense of community and understanding.· It's important to communicate with healthcare providers and ask questions to ensure that your needs are being addressed.· Managing dystonia often involves a combination of approaches,
**Please be sure to catch the link to a powerful testimonial about Greg's practice below! JN In this episode, Greg Spence of Mystery to Mastery and Denver-based amateur trumpeter Julie Baxes discuss experiences and strategies for overcoming focal dystonia. Recorded at the recent ITG conference in Anaheim, Julie shares her near-recovery journey from dystonia, while Greg explains how his Mystery to Mastery program unintentionally became a beacon for dystonia sufferers. Julie candidly describes her initial focal dystonia symptoms, her reconnection with Greg during COVID, and the intensive process of understanding and managing the condition. She recounts her personal struggles, including a misinterpretation of feedback from a conductor,which led to a great deal of personal shame. Ultimately this led to a loss of control of her physical abilities, and even a sense of isolation from the music community.Listen to Julie recount her determined comeback into the ranks of performing artists through patience, a conscientious mindset re: music and finding her place in her local scene given her experiences.Emphasized throughout the interview is the importance of stillness, error detection, and a step-by-step approach to remapping neural pathways. Julie and Greg both stress the need for open conversations about focal dystonia in the musician community and the importance of catching early signs. The episode closes with advice for those potentially facing the condition and a call to action for orchestras and universities to support affected musicians.Episode highlights01:46 Julie's Journey with Focal Dystonia02:07 Greg's Teaching Approach04:00 The Mystery to Mastery Program05:50 Understanding Stillness and Anxiety14:00 Julie's Personal Struggles34:23 The Challenge of Achieving Stillness35:35 The Importance of Closing Your Eyes37:16 Understanding Focal Dystonia39:47 The Error Trilogy: Detection, Rejection, Correction40:40 Personal Experiences and Techniques41:52 The Role of Psychological Factors43:22 The Journey to Recovery49:12 The Importance of Open Communication53:59 Distinguishing Focal Dystonia from Performance Anxiety56:07 Advice for Musicians to Prevent Focal Dystonia01:04:39 Final Thoughts and EncouragementResources mentioned:Mystery to Mastery"Greg Spence Changed My Life" videoAbout the guests:Julie Baxes is an amateur trumpet player who began her music journey as a pianist, performing with church choirs, in small ensembles and for weddings and other special occasions. She picked up trumpet in her mid 40s and has studied with a variety of teachers over the years, most recently working exclusively with Greg Spence for the past 4 years. Julie has performed with the Jeffco Community Band, Jeffco Brass (for wedding receptions, civic events, church services and retirement communities), university jazz and concert bands, and the Rocky Mountain Brassworks, a British-style brass band that performs in Denver metro area venues. Julie has worked in the marketing communications and public affairs field for more than 30 years as a writer, editor, public speaker, staff manager, marketing and public affairs strategist, and special events manager. She holds a BA in journalism and a marketing minor from Arizona State University. ___Greg SpenceFrom a...
Dr. Sara Schaefer interviews Dr. Roberto Erro on the phenotypic characteristics of essential tremor, essential tremor with soft dystonic signs, and tremor combined with dystonia through analysis of The Italian tremor Network (TITAN) data. Read the article.
Clayton Haslop's journey as a violinist has been nothing short of extraordinary. At just 18, he joined the Los Angeles Chamber Orchestra and rose to become its concertmaster. Over the years, he also served as concertmaster for the Los Angeles Opera Orchestra and contributed his talents to numerous iconic film scores, including Titanic, The Matrix, and many others. But Clayton's path wasn't always smooth. In his forties, he faced a daunting challenge when he was diagnosed with Focal Dystonia in his left hand. Despite years of struggle and bouts of depression, Clayton made a remarkable comeback by relearning to play the violin using only two fingers on his left hand. I'm especially honored to have this conversation with Clayton, as we were roommates in Santa Monica in the early 1980s. Although I was ten years his senior, I learned so much from him during those years. Speaking with him on this podcast is truly a privilege.In Part 1 of our conversation, we delve into what it's like to be a concertmaster for some of the top studio orchestras, the experience of working on blockbuster films like Titanic and The Matrix, and collaborating with renowned film composers, each with their unique personalities and approaches to recording sessions. We also explore Clayton's early years, including his studies with the legendary violinist Nathan Milstein, and discuss the beginnings of his career along with some key concepts from his Violin Mastery Course.In Part 2 [Subscriber Content], Clayton delves into the profound challenges he faced after being diagnosed with Focal Dystonia. Drawing inspiration from the legendary guitarist Django Reinhardt, who famously played with only two fingers on his left hand, Clayton reimagined his own technique to continue playing the violin at an exceptional level. He shares the physical and mental strategies that enabled him to overcome this seemingly insurmountable obstacle. Beyond the technical adjustments, Clayton talks about his deep musical connection with the members of an assisted living community.Would you like more inspirational stories, suggestions, insights, and a place to continue the conversations with other listeners? Visit anthonyplog-on-music.supercast.com to learn more! As a Contributing Listener of "Anthony Plog on Music," you'll have access to extra premium content and benefits including: Extra Audio Content: Only available to Contributing Listeners. Podcast Reflections: Tony's written recaps and thoughts on past interviews, including valuable tips and suggestions for students. Ask Me Anything: Both as written messages and occasional member-only Zoom sessions. The Show's Discord Server: Where conversations about interviews, show suggestions, and questions happen. It's a great place to meet other listeners and chat about all things music! Can I just donate instead of subscribing? Absolutely! Cancel at anytime and easily resubscribe when you want all that extra content again. Learn more about becoming a Contributing Listener @ anthonyplog-on-music.supercast.com!
Dr. Sarah Camargos interviews Dr. Giovanna Zorzi on the outcomes of a cohort of non-degenerative pediatric patients with idiopathic and genetic dystonia who were submitted to GPi-DBS and compares these outcomes with a meta-analysis of the literature. Journal CME is available until July 24, 2025 Read the article.
Send us a Text Message.You are going to love today's episode! Barbara Banacos is an inspiration. As a young pianist, she endured an injury that manifested itself as a form of dystonia. This is significant because it is not well-understood in the medical community. The Taubman Approach can help you if you are struggling with a devastating injury. Some of us are experiencing devastating injuries in regards to playing the piano. We are here to help! Go to Golandskyinstitute.org and we will get you connected to a teacher to help you. If you could list my website and social media in the show notes I'd greatly appreciate it!Website: www.barbarabanacos.comInstagram.com/barbara.banacosFacebook: Barbara Banacos Piano Studioyoutube.com/@barbarabanacosBarbara Banacos is the daughter of world-renowned jazz educator Charlie Banacos and pianist/educator Margaret Banacos. She began teaching in her mother's studio in 1997. Ms. Banacos teaches children and adults from beginner to advanced levels with a focus on classical music and offers advanced technical training in the Taubman Approach. While completing her undergrad and graduate degrees in music from CUNY Hunter College, Ms. Banacos ran a private studio in Millburn/Short Hills, NJ and taught at Montclair State University Preparatory School. Since returning to the Boston area in 2003, Ms. Banacos teaches in-home private lessons in Lexington and Winchester, MA and at her home studio in Hamilton, MA. She has also taught remotely since 2010, reaching students as far away as Malaysia and New Zealand.One of only three teachers in the Boston area certified in the Taubman Approach, Ms. Banacos has studied with Robert Durso of the Golandsky Institute since 1997. She is certified at the Associate level with the Golandsky Institute, is adjunct faculty for their annual summer symposiums at Princeton University and has led their support groups for many years. She has presented lectures on piano technique at the Golandsky Institute Boston Workshops and was invited to teach at the Danilo Pérez Foundation in Panama, assisting Edna Golandsky. Check out the Golandsky Institute and info/videos about the Taubman Approach here. Other significant teachers include Edna Golandsky, Charlie Banacos, Garry Dial and Lefteris Kordis.Ms. Banacos has performed as a soloist, accompanist and in numerous piano duos with her favorite duet partner, Margaret Banacos.(If you are looking to study the lessons of Charlie Banacos via online lessons taught by Garry Dial, click here for more information or inquire by emailing Barbara at charliebanacos@gmail.com)This Summer, Edna Golandsky, renowned pedagogue and leading expert on the Taubman Approach will release her first book with Amplify Publishing Group. Entitled ‘The Taubman Approach To Piano Technique: A Comprehensive Guide To Overcome Physical Limitations and Unlock Your Full Pianistic Potential.' Visit: www.ednagolandsky.com to learn more.The Golandsky Institute's mission is to provide cutting-edge instruction to pianists based on the groundbreaking work of Dorothy Taubman. This knowledge can help them overcome technical and musical challenges, cure and prevent playing-related injuries, and lead them to achieve their highest level of artistic excellence.Please visit our website at: www.golandskyinstitute.org.
Today's episode features an interview with trombonist/publisher David Vining, recorded at the 2024 ITG Conference in Anaheim, California.David was diagnosed with focal dystonia in 2003. In our interview, he discusses his struggles, eventual recovery through holistic movement therapies such as Feldenkrais, Alexander Technique, and body mapping and exposing the vastly understudied diagnoses and treatment of focal dystonia.Perhaps the biggest misconception about focal dystonia is that it is a physical problem. While the symptoms manifest in the physical realm, it is a distinctly neurological issue which disrupts musicians' fine motor skills.David's diagnosis and eventual recovery inspired him to establish Mountain Peak Music, which offers resources and materials aimed at promoting healthy playing and living habits, as well as taking a preventative approach to issues like dystonia.Episode Highlights:01:25 David Vining's Musical Journey04:37 The Onset of Focal Dystonia05:43 Diagnosis and Initial Struggles09:24 Exploring Treatment Options18:34 Movement Therapies and Recovery25:29 Redefining Embouchure and Global Awareness26:46 Rafael Mendez a Model of Overcoming Adversity27:54 Recovering from Focal Dystonia29:33 Founding Mountain Peak Music30:19 The Breathing Book and Body Mapping32:32 Innovative Learning Materials36:49 Success Stories and Cross Training45:02 Challenges with High Brass Players46:42 Final Thoughts and AdviceResources mentioned:Mountain Peak MusicAbout the Guest:Trombonist David Vining is the founder of Mountain Peak Music, a publishing company devoted to offering innovative, healthy teaching methods for all musicians. Mountain Peak Music represents Mr. Vining's personal mission, combining his extensive performing and teaching background with insights learned through his remarkable recovery from embouchure dystonia. His Mountain Peak Music publications include the Breathing Book series, Flow Studies, Daily Routines, Long Tone Duets, Trombone Intonation Mastery, Dueling Fundamentals for Trombones, Cross Training for Musicians, The Big Book of Sight Reading Duets, Teaching Brass, and Rangesongs.Currently Professor of Trombone at Northern Arizona University in Flagstaff, Arizona, Mr. Vining has also served on the faculties of the University of Cincinnati's College-Conservatory of Music and the University of Kansas. Professor Vining's teaching transcends his trombone specialty, covering a wide range of topics appealing to musicians of every discipline. He is equally at home teaching trombone technique, helping instrumentalists and vocalists become more efficient, and helping musicians cope with injuries, among other topics.Mr. Vining is a dynamic performer who has delivered hundreds of recitals nationwide. As trombonist with the Chestnut Brass Company, he recorded several CD's and toured the United States and Europe performing recitals, masterclasses, and concerts with orchestras. Currently a member of the Flagstaff Symphony, he has performed with the Cincinnati Symphony, Kansas City Symphony and the Philadelphia Orchestra. Mr. Vining has appeared on college campuses coast-to-coast in recital and as a guest soloist with ensembles, and recorded a solo CD, Arrows of Time.Body + Mind + Spirit = Mastery. Now available is a collection of excerpts from some of the most popular...
We welcome to the podcast Marcus Reynolds, who with his Stratos Brass device has provided a beacon of hope for the thousands of brass players across the globe who struggle with embouchure issues. Like many great triumphs in life, Marcus' journey to becoming a tireless promoter of safer and healthier brass playing began with a tragedy. A major lip injury completely derailed Marcus' successful playing career. In an instant his sole source of income and personal identity was gone. In this episode, Marcus shares in-depth the painful - both physical and psychological - road to recovery, and how a mysterious "nocturnal hieroglyphic" ultimately became the inspiration for a device that is changing lives for the better. Indeed it is no exaggeration to say that Marcus' tireless efforts have even extended playing careers that once appeared to have reached their end. Enjoy the episode! Episode highlights: -Belief in the mission compels a tireless promotion of the solution for the problem...01:55 -A catastrophic lip injury set Marcus through the extreme depths and heights of human emotion...03:50 -The psychological damage was just as profound as the physical...09:35 -A "nocturnal hieroglyphic" circa 2008 is ultimately the genesis of the Stratos Brass device....11:05 -You become a self-psychologist when your identity is taken away from you...18:10 -Clarifying the "upstream" and "downstream" of air flow...24:40 -Success stories from high-profile musicians who've worked with Marcus and his invention...27:30 -The basic physiology of what's going on with your body when you use the Stratos device...33:00 -How Marcus' personality and self-perception has changed after becoming a quasi-celebrity in the brass world...45:05 -"It's very possible that you've had a greater impact in light of that accident than you ever would have had you stayed perfectly healthy"... 54:50 -Plus whatever your discerning ears deem worthy of your time and interest... Resources mentioned: Stratos Brass Brass Mastery podcast w/ Larry Meregillano About the Guest: "I am a brass instrument tutor of over 40 years experience in both the private and local government sectors. As well as general brass teaching, I also specialise in embouchure development and rescue for brass players. Building on my experience as a teacher and professional musician I am also the creator of the unique STRATOS Embouchure System. I am also an author of ‘Range without Resistance'. Stratos Encore Pro is an adaptable and adjustable embouchure system that can be fitted to virtually all brass instruments to help players adapt and improve their embouchure. I have also written a series of articles on the brass embouchure which have been published in Brass Band World, Brass Herald and British Trombone Society Magazine. As a professional musician I have over 30 years experience of recording music and performing live, both as a lead trombonist and a solo artist. I also have many years experience in the role of musical director for several big bands and brass ensembles. I currently play a Rath R12 trombone which I co-developed with Michael Rath Trombones." Body + Mind + Spirit = Mastery. Now available is a collection of excerpts from some of the most popular episodes of the Trumpet Dynamics podcast featuring the likes of Chris Coletti, Sergei Nakariakov, Manny Laureano, and more.It's a FREE download available right now on brassmastery.com!Mentioned in this...
It's also a great privilege for me to share today's interview with Kara Goucher. Kara is a two-time Olympian, World Championship medalist, and one of the most accomplished and admired long-distance runners of our time. Beyond her competitive achievements, Kara is also a passionate advocate for clean sport and gender equity, an inspiring speaker, author, podcaster and NBC broadcaster for track and field. She's someone who continues to inspire runners of all levels. As we'll talk about in this interview, two years ago, Kara began slipping while she was running. And after seeing multiple doctors, she was diagnosed with Runner's Dystonia, a neurological disorder with some similarities to Parkinson's. Many of you may remember the interview I did with my friend, and fellow Team Foxer, Justine Galloway, who also has Runner's Dystonia. So this is something we'll also talk about in this episode. Kara also as a unique and hard-won perspective on the power of brands to affect social change, and the power that we have as people– individually and collectively– to move and work with them to do so. Most recently, Kara has partnered with Brooks Running, a brand that holds a very special place in our hearts here at Charity Miles. Whenever we ask you what brands you want us to partner with, Brooks is always the #1 response. Which is why we are so thrilled to also be partnering with Brooks this year. For over a century, Brooks has been propelled by a never-ending curiosity with how humans move. It drives their every decision and every innovation. Because they believe movement is the key to feeling more alive. And we're all moving towards something. It could be the top of a mountain, a first-ever 5K, or peace of mind after a stressful day. It could be a cure for Parkinson's, a cleaner planet, fair play. So… let's run there. With gear and experiences specifically designed to take you to that place. Whether it's a headspace, a feeling, or a finish line. Let's run there. Head to BrooksRunning.com to learn more.
What are the stigmas and stereotypes attached to cerebral palsy? What is daily life with dystonia like? What is cerebral palsy and how does it develop?In this podcast, Thomas Henley talks to Emma Stone, a cerebral palsy advocate (dystonia) and decorated horseriding athlete, currently studying a variety of Work Preparation modules in college and working in a local cafe.Within this podcast, Emma aims to dispell stigma and stereotypes around cerebral palsy and bring more awareness to them and share the more intimate negative experiences they've gone through in daily life, school, physio, surgery and healthcare. She also highlights the life lessons she's picked up and details her top tips for other individuals with cerebral palsy.Thomas's Links: https://linktr.ee/thomashenleyUKEmma's Blog: https://estoneblogersa.blogspot.com/?m=1Chapters: 00:00 - 01:24 Introduction01:24 - 05:09 Surgery and Deep Brain Stimulation (DBS)05:09 - 08:24 Who Is Emma Stone?08:24 - 10:55 What Is Cerebral Palsy?10:55 - 14:19 Developing Cerebral Palsy14:19 - 21:27 Living With Dystonia21:27 - 32:36 Escaping Isolation With Cerebral Palsy32:36 - 37:02 Navigating Healthcare with CP37:02 - 39:38 Horse riding Achievements39:38 - 46:45 Tips for Living With Cerebral Palsy46:45 - 49:08 Identity vs Person first language49:08 - 56:05 Stigma and Stereotypes56:05 - 01:02:56 Final ThoughtsSong Of The Day (Listen Here) - https://open.spotify.com/playlist/5UDIyN5TSYN4zMcRoQPrG8?si=9255ed3480d840b5Subscribe to the channel to get notified when I next go live
Ruth Chiles is a specialist in Focal Dystonia and, as a musician herself, she works particularly with musicians. She's created support groups, hours and hours of video, appeared in many interviews, and written a book, (with another book on the way!) Links to her work are below.Tune into this episode to hear Jim ramble on incessantly, proving that Ruth is a very patient and gracious listener. Obviously an excellent person to work with!Here's a link to her website: https://focaldystoniacure.com/Here's a link to her YouTube channel: https://www.youtube.com/@FocalDystoniaCureHere's a link to her Facebook page: https://www.facebook.com/focaldystoniacure/Here's a link to her Facebook learning-community group: https://www.facebook.com/groups/focaldystoniacurelearningcommunity-We're on Facebook: https://www.facebook.com/DroningOnPodcastAnd Instagram: https://www.instagram.com/droning.on.podcast/-You can write-in to the show with comments, ideas, requests, etc. at TheDroningOnPodcast@gmail.com-Support the show via Patreon (patreon.com/DroningOnPodcast), or by buying cool stuff at BagpipeSWAG.com - - - And now, some keywords: Bagpipes, bagpipe, bag, pipe, pipes, pipe, band, pipeband, Scottish, small, drone, droning, chanter, highland, lowland, uilleann, smallpipes, trad music, focal dystonia, musician's dystonia, dystonic symptoms, task-specific dystonia
On this episode, Matt & Andrea have the privilege of interviewing Olympian Kara Goucher. Kara's just released her book, the Longest Race, Inside the Secret World of Abuse, Doping, and Deception on Nike's Elite Running Team. They cover many facets of Kara's story, from her current struggles with runner's dystonia to her integral part in exposing the Nike Oregon Project and Alberto Salazar. They also discuss how excel at any fitness level, finding joy in running by feel, and encouraging female runners of all ages. Kara Goucher is a three-time NCAA champion, two-time Olympian, winner of the silver medal at the 2007 World Championships in the 10,000 meters, and a podium finisher at the Boston and New York Marathons. She is a running analyst for NBC Sports. She cohosts the hit running commentary podcast Nobody Asked Us with Des & Kara, as well as the Clean Sport Collective podcast, promoting fair play in sports. She lives in Boulder, Colorado, with her Olympic-runner husband, Adam, and their son, Colt. Her website is KaraGoucher.com. Report at the links below if you have experienced abuse or misconduct, or if you have reasonable suspicion of abuse or misconduct inflicted on, or by, someone in the U.S. Olympic and Paralympic Movement, which includes USATF. There are no associated costs, fees, or other financial barriers attached to submitting a report. The reporting form available when clicking the ‘Report Abuse or Misconduct' button allows for reports to be made anonymously.https://uscenterforsafesport.org/report-a-concern/https://www.usatf.org/safe-sport/reporting-a-safe-sport-complaintIf you or someone you know needs help with disordered eating, please consult these resources:https://www.nationaleatingdisorders.org/resource-center/https://fastr.stanford.edu/resources/ Chapters 0:00: - Intro 2:16: - If you could change one thing about the sport of running, what would it be? 16:09: - How to find your own excellence level 20:34: - Kara's runners dystonia diagnosis 32:02: - How shoe choice effects dystonia 40:17: - Learning to live & train with dystonia 44:50: - Kara's new book 49:09: - The impacts of Kara's testimony about the Nike Oregon Project 53:44: - The role of SafeSport in protecting athletes 1:00:51: - Improving female athlete's health as they grow and age 1:12:12: - Wrap-up We're offering a chance to win a $100 Running Warehouse Gift Card! TO ENTER: Drop a comment in our Sunday YouTube episode for this podcast, and let us know what we should title this series! About the Contest We're excited to share that we're partnering with Running Warehouse for not one, not two, but eight giveaways in the coming weeks. All you have to do to enter this week is leave a comment about what shoe you're excited for to enter for a chance to win a $100 dollar gift card to Running Warehouse. (If you left a comment in last week's video, we'll count it this time, but in the future it'll be the same podcast's Sunday drop!) The contest is open through Friday the 29nd at 9 PM EST. Only US residents are eligible to enter. Please respond to our account only for winner announcements. We'll reach out to you on how to get the $100 Gift Card. --- Support this podcast: https://podcasters.spotify.com/pod/show/doctors-of-running/support
MedLink Neurology Podcast is delighted to feature selected episodes from BrainWaves, courtesy of James E Siegler MD, its originator and host. BrainWaves is an academic audio podcast whose mission is to educate medical providers through clinical cases and topical reviews in neurology, medicine, and the humanities, and episodes originally aired from 2016 to 2021. Originally released: March 1, 2018 Dystonia refers to a complex spectrum of disturbances in movement, and the differential diagnosis is even more complicated, but Drs. Andres Deik and David Coughlin make it simple. In this week's episode of the BrainWaves podcast, we'll run through the basics of a dystonia differential and approach to managing patients with these complex symptoms. Produced by James E Siegler and David Coughlin. Music by Lee Rosevere, Rui, and the Freeharmonic Orchestra. BrainWaves' podcasts and online content are intended for medical education only and should not be used for clinical decision-making. REFERENCES Albanese A, Barnes MP, Bhatia KP, et al. A systematic review on the diagnosis and treatment of primary (idiopathic) dystonia and dystonia plus syndromes: report of an EFNS/MDS-ES Task Force. Eur J Neurol 2006;13(5):433-44. PMID 16722965Albanese A, Bhatia K, Bressman SB, et al. Phenomenology and classification of dystonia: a consensus update. Mov Disord 2013;28(7):863-73. PMID 23649720Skogseid IM. Dystonia--new advances in classification, genetics, pathophysiology and treatment. Acta Neurol Scand Suppl 2014;(198):13-9. PMID 24588501 DISCLOSURESAndres Deik eceived consulting royalties from Adamas therapeutics, Teva pharmaceuticals, ITF Pharma, and Cynapsus Therapeutics. His research has been funded in part by Cynapsus therapeutics and The Dystonia Coalition. David Coughlin, like Jim Siegler, has no competing financial interests to disclose. We believe that the principles expressed or implied in the podcast remain valid, but certain details may be superseded by evolving knowledge since the episode's original release date.
Dr. Andrea Yoo discusses what patients should know about dystonia. She describes the conditions of the movement disorder that causes involuntarily contractions of muscles. While there is currently no cure, she reviews the helpful treatments available to alleviate painful symptoms.To schedule with Dr. Andrea Yoo
In this episode, Brain & Life Podcast host Dr. Daniel Correa interviews Justine Galloway, a runner who was diagnosed with Runner's Dystonia and continued on to break world records in backwards running. They discuss her father's Parkinson's journey, her diagnosis process, and how she continues to adapt and find motivation. Then, Dr. Correa speaks with Dr. Joseph Jankovic, a neurologist specializing in movement disorders. Dr. Jankovic explains Dystonia, what some of the risk factors are, and treatment options. Additional Resources Much More Than a Pain in the Neck: The Different Types of Dystonia Medications and Lifestyle Changes Can Help People Cope with Dystonia Easing the Weight of Dystonia Isn't Just a Story of Triumph Speaking Up About Dystonia Facing DYT1 Dystonia with Grit and Hope Other Brain & Life Podcast Episodes on These Topics Rogers Hartmann on Beating Dystonia Billy McLaughlin on Life as a Musician with Focal Dystonia We want to hear from you! Have a question or want to hear a topic featured on the Brain & Life Podcast? · Record a voicemail at 612-928-6206 · Email us at BLpodcast@brainandlife.org Social Media: Guests: Justine Galloway @rennur316; Dr. Joseph Jankovic @josephjankovic Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD
Dr. Alissa Higinbotham delves into the topic of Myoclonus-dystonia.
Author Liz Nugent and neurologist Professor Richard Walsh talk about how a condition called Dystonia causes her daily pain and the deep brain stimulation treatment that may help
Laryngeal dystonia (LD) is a rare disorder affecting the vocal cords. Dr. Sarah Camargos sits down with Prof. Kristina Simonyan while she breaks down the methodology and findings of her comprehensive study investigating the temporal-spatial signature of LD. Read the article
Dr Luisa Averdunk of the University Children's Hospital in Düsseldorf discusses the investigation of a 2-year-old presenting with acute episodes of dystonia and symmetrical basal ganglia abnormalities. Will you unravel this metabolic mystery before all is revealed? See the associated image and read the full report here: https://onlinelibrary.wiley.com/doi/full/10.1002/jimd.12680
What innovations in dystonia treatments do we have to look forward to? Dr. Mark Edwards sits down with Dr. Sarah Camargos to answer that vary question. 2023 Congress virtual access
Dystonia is a mysterious condition that causes muscles to contract involuntarily. It can strike many parts of the body, making the head turn, the eyelids close, or the hand twist. We don't know what causes dystonia. It can arise after head trauma or a stroke, and it often appears in conjunction with Parkinson's disease. There is no cure, but experts like Dr. Natalie Diaz, a neurologist at PNI, can ease the symptoms with medication. A treatment you may not expect: Botox. A natural toxin, Botox prevents the release of a neurotransmitter that causes the muscles to contract. After an injection, dystonia sufferers very often find that their symptoms dissipate, and that is a welcome relief from this strange, discomforting disease.
Say high to Caroline
#238 - It's called Rocksylvania for a reason, Jenn Devore tells us, as she talks about her home state, Pennsylvania. She lives close to some very beautiful trails in the mountains of her lovely state. I enjoy looking at all the photos she shares and one day, I'll visit to try out some of those technical trails! She shares how she got started running and tells us about the charities that are close to her heart. She works very hard to spread the word about the rare disease Dystonia and tells us about it in this episode, as well as the fund raising she's doing for Dwell Orphan Care. We'll help spread the word for her. All links are on the MRTW website. The Pennsylvania running community is alive and well! Fit, Healthy & Happy Podcast Welcome to the Fit, Healthy and Happy Podcast hosted by Josh and Kyle from Colossus...Listen on: Apple Podcasts SpotifySupport the showMartha Runs the World websitehttps://www.martharunstheworld.com/Email:martharunstheworld@gmail.comInstagram:https://www.instagram.com/martha_runs_sf/
WARNING: PLEASE DO NOT DRIVE OR OPERATE ANY MACHINERY WHILE LISTENING TO HYPNOSIS. ALSO BEFORE LISTENING TO THIS SESSION, PLEASE CONSULT WITH YOUR HEALTH CARE PROVIDER IF HYPNOSIS IS RIGHT FOR YOU IN THIS CASE. This episode is by request. Dystonia is an involuntary muscle contraction that causes repetitive or twisting movements. Dystonia may affect one or more parts of the body, and sometimes the entire body. can be mild or severe. Thank you for listening to Hypnosis, deep in the mind. I hope you continue to have a wonderful day or night wherever you are from in the world. See you in the next episode.
As a young person Julie Kent was an athlete in multiple disciplines and a fierce competitor who was often forced to work through and compete in extreme pain. When she brought this aggressive mindset into her professional career her body made it very clear that she could not continue by manifesting full body dystonia.In this conversation, Julie shares her journey to wellness and regaining a competitive edge while honoring her own mental and physical needs.Julie is a private person who simply wanted to share her experience. She does not have a website or offer services.The introduction to this podcast is narrated by Rick Lamb PhD.*The information provided in this podcast is not intended to be a substitute for professional medical, psychiatric or veterinary advice or treatment. Always seek licensed medical, psychiatric, or veterinary care. Interspecies Evolution™ promotes holistic balance through an integrative treatment model defined by the National Center for Complementary and Integrative Health.Please use discernment when contracting with energy "healers" who claim to heal humans or animals in any capacity. Interspecies Evolution™ promotes self-awareness and empowerment through education and direct experience on one's own journey of remembering.www.interspeciesevolution.comFor more information about the Host, Ginny Jablonski, please refer to her website at www.heartofthehorse.us
"I feel really, really free." Kara's back! In the year since her last appearance on the Ali on the Run Show, Kara Goucher has become a New York Times best-selling author and co-host of the fan-favorite podcast, Nobody Asked Us with Des and Kara. This week, Kara heads to Eugene, OR, where she'll be on the NBC broadcast calling the men's and women's distance events at the USATF Outdoor National Championships. (Here's how to watch.) In this episode, we're talking about some of the standout storylines to watch at this year's races. Plus, what life has been like since Kara's book, The Longest Race, came out earlier this year, chatter about the fun things professional athletes don't know about (how much race photos cost!), an update on Kara's running (Boston 2024?!), and so much more. SPONSORS: UCAN: Click here to get a FREE Edge sample pack (you'll just pay the cost of shipping), and use code ALI23 for 20% off your next UCAN order. Vuori: Click here for 20% off your first Vuori purchase. What you'll get on this episode: What it's like being Kara Goucher in downtown Duluth, MN (2:45) All about Kara's role at this year's USATF Outdoor National Championships on CNBC (4:30) What to know about this year's distance races at USAs (11:00) How Kara feels about heading back to Eugene, OR — and where's the hype? (22:40) An update on Kara's running, and the latest on her life with runner's dystonia (34:25) On race photos, and professional photographers, Venmo, and more (40:30) What's next for Kara Goucher, distance analyst, and her thoughts on the 2024 U.S. Olympic Marathon Trials in Orlando (47:45) What's next for Kara Goucher, co-host of Nobody Asked Us with Des & Kara (55:00) On life since the release of Kara's book, The Longest Race (58:30) For more, check out: Kara Goucher on Episode 525 of the Ali on the Run Show Kara Goucher on Episode 411 of the Ali on the Run Show Kara Goucher on Episode 43 of the Ali on the Run Show Kara Goucher on Episode 86 of the Ali on the Run Show Kara and Adam Goucher on Episode 208 of the Ali on the Run Show Follow Ali: Instagram @aliontherun1 Join the Facebook group Twitter @aliontherun1 Support on Patreon Subscribe to the newsletter SUPPORT the Ali on the Run Show! If you're enjoying the show, please subscribe and leave a rating and review on Apple Podcasts. Spread the run love. And if you liked this episode, share it with your friends!
One of the pioneers in dystonia research and treatment joined us today on the show! We were thrilled to sit down with Dr. Nancy Byl to hear about her fascinating career and take a tiny peek into her knowledge-filled brain. She is a leading expert on treating dystonia and has a comprehensive approach to working with individuals with dystonia that includes improving their stress, lifestyle and sleep in addition to training motor control. However, sensory processing is an often overlooked and misunderstood aspect critical to recovery. Dr. Byl believes variety and fun are key components in rehabilitation and describes interesting ways she incorporates it into all of her treatment sessions, no matter whom she's working with. She's a huge supporter for the physical therapy profession and continues to advocate for advancements in care, research, and access. She is an incredible role model and human being. We can't wait for you to learn more about Dr. Byl in this episode!!
Best Of Belfast: Stories of local legends from Northern Ireland
Welcome to Sport Inspires: a podcast recorded in collaboration with The Mary Peter's Trust and made possible by the Coca-Cola Thank You Fund. Today's episode is with Claire Taggart, the 2022 Boccia World Champion and the first person from Northern Ireland to ever compete at the Paralympics in the sport. In today's episode we talk about: What boccia is (and why it's “way better than bowls!”) Being diagnosed with a neurological condition at the age of 18 How Claire got into the sport The logistics of travelling with an eletric wheelchair Why boccia is a “nail-biting sport” The opportunties being a professional athlete has brought into Claire's life And advice she would give to her 18-year-old self. Check it out! Claire's Etsy: https://www.etsy.com/shop/NiftyNotebooksUK The 200 Club: https://marypeterstrust.org/club200/ // https://bestofbelfast.org/stories/claire-taggart //
After learning about 3 x Boston Marathoner, Justine Galloway's journey on the Today Show, we had to reach out to se if she would share her story on the podcast. We are so grateful that Justine agreed to do so! Justine, a former runner for Rutgers University and a 3:16 marathoner, was diagnosed with Runner's Dystonia at age 31 after suddenly not being able to run without extreme difficulty. Rather than quit the sport, she figured out a way to keep moving forward…by running backwards. Since her diagnosis, Justine has run 7 half marathons and the New York City Marathon backwards. In doing so, she set two World Records. What is most inspiring about Justine is her ability to take a seemingly insurmountable obstacle and turn it into an opportunity. Justine can be found on Instagram at Rennur316. Give her a follow and help her inspire others to overcome seemingly impossible challenges. Speaking of obstacles, don't miss our bonus interview with the amazing Noah S., Lisa's nephew, at the end of the episode. --- Send in a voice message: https://anchor.fm/runfartherandfaster/message
"It's been hard to swallow that there is no miracle. It's going to take time." It's been nearly one year since Kara Goucher came on the Ali on the Run Show to talk about what it was like being a part of the NBC Sports broadcast team during the Tokyo Olympics. Today, Kara returns with all kinds of updates. In this fun, wide-ranging conversation, Kara talks about how she has gotten more comfortable in her role as an NBC Sports Distance Analyst, and shares her broadcast plans for the summer. She talks about how she's honed her skills, and shares whether she still gets nervous to go live on air. Kara talks candidly about her recent Runner's Dystonia diagnosis, and what that means for her health, her running, and her family. Plus: parenting during difficult times, going through life as a highly sensitive person (same), and the possibility of a Kara Goucher and Des Linden podcast. SPONSOR: UCAN — Go to ucan.co/ali and use code ALI for 20% off your next UCAN order. What you'll get on this episode: What's making Kara happy today (3:30) How Kara's confidence has grown as a commentator, and how she's balancing TV jobs and motherhood (4:15) All about calling the Boston Marathon (18:00) Are Kara and Des Linden launching a podcast?! (22:10) An update on Kara's runners dystonia diagnosis, and what treatment she's trying now (26:25) All things motherhood and parenting during difficult times (42:30) For more, check out: Kara Goucher on Episode 411 of the Ali on the Run Show Kara Goucher on Episode 43 of the Ali on the Run Show Kara Goucher on Episode 86 of the Ali on the Run Show Kara and Adam Goucher on Episode 208 of the Ali on the Run Show What Made Maddy Run by Kate Fagan Follow Kara: Instagram @karagoucher Twitter @karagoucher Facebook Clean Sport Collective Podcast Blog Follow Ali: Instagram @aliontherun1 Join the Facebook group Twitter @aliontherun1 Support on Patreon Blog Strava SUPPORT the Ali on the Run Show! If you're enjoying the show, please subscribe and leave a rating and review on Apple Podcasts. Spread the run love. And if you liked this episode, share it with your friends!
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