Podcasts about Dystonia

Journalist and author Sonya Voumard on the rare neurological condition that has stalked her since a family tragedy during her childhood.Sonya Voumard was on the precipice of teen hood when her father suddenly and unexpectedly died.In the months following his death, Sonya developed a tremor in her right hand, not dissimilar to the shaking she sometimes noticed in her father when he was cutting the top off her boiled egg at breakfast.The tremor got worse as she got older, but working late nights as a dogged journalist, fuelled by coffee and nicotine, it almost became a badge of honour for Sonya.One day, though, a terrifying moment while driving set her off on a decades-long quest through Australia's medical system.This episode of Conversations explores disability, neurological condition, brain surgery, experimental medicine, grief, untimely death, death of a father, journalism, Port Arthur massacre, Mabo, Melbourne, substance abuse, alcohol, shaking, Parkinson's, being queer, unexplained medical anomalies, neurosurgeon, neuroscience, St Vincent's hospital, writing, books, memoir, Dystonia, essential tremor, familial tremor, MS, multiple sclerosis, medical system, medicare, public versus private patients.Tremor: a movement disorder in a disordered world is published by Finlay Lloyd.Learn more about dystonia from the Dystonia Network of Australia.

durée : 00:30:06 - " Dystonia " de Fabien Touchard - par : Anne Montaron - La création de cette semaine est signée Fabien Touchard. C'est un concertino pour piano et ensemble écrit sur mesure pour le pianiste Sélim Mazari et l'Ensemble Les Apaches. - réalisé par : Olivier Guérin

durée : 00:30:06 - " Dystonia " de Fabien Touchard - par : Anne Montaron - La création de cette semaine est signée Fabien Touchard. C'est un concertino pour piano et ensemble écrit sur mesure pour le pianiste Sélim Mazari et l'Ensemble Les Apaches. - réalisé par : Olivier Guérin

Hannah Diviney is one of the most powerful people in pop culture. At just 25 years old, the author, advocate, and actor hasn’t just called out Lizzo for using an ableist slur—she also took on Queen B herself. And she succeeded on both fronts. Which, once you get to know her, isn’t surprising at all. In our Vulnerabilitea House, Hannah reflects on the questions: “How do you see yourself? Is it the same way your loved ones see you?” Answering with incredible vulnerability, Hannah shares how her relationship with her disability has evolved over time and what it was like growing up in a world where the Paralympics seemed like the only visible marker of success. We talk to Hannah about being a part of intimate television history, and Ryan, the love doctor, Shelton manifests a Brad (or Stewie, or Chris, or Michael-Angelo) in her future. Hannah, we are so desperate to be your friend. To watch this full episode on YouTube, click here: https://bit.ly/41vzALg

Dr. Jeff Ratliff delves into the common causes of acquired dystonia and highlights evidence-based treatment strategies for effective management.    

Recorded at the 2024 ITG conference in Anaheim, Greg Spence and Julie Baxes discuss their experiences with focal dystonia, a neurological condition that affects musicians. Julie shares her "near-recovery" journey from full-on focal dystonia, detailing the struggles and triumphs in rediscovering her musical abilities with the help of Greg's structured teaching approach. They explore the steps required for overcoming focal dystonia, touching on the importance of stillness, error detection, and positive self-talk. Additionally, they emphasize the need for greater awareness and support within the musical community to address and treat this condition effectively.Episode highlights:01:16 Julie's Journey with Focal Dystonia01:37 Greg's Teaching Approach03:32 The Mystery to Mastery Program05:23 Understanding Stillness and Anxiety13:30 Julie's Personal Struggles34:59 Identifying the Error and Initial Reactions35:58 The Challenge of Stillness and Performer Mode36:35 The Importance of Closing Eyes in Therapy38:16 Moving Past Focal Dystonia: The Process39:24 Individual Factors and Strategies for Recovery40:47 The Error Trilogy: Detection, Rejection, Correction41:52 Technical Steps and Psychological Challenges50:12 The Role of Honesty and Community Support54:59 Distinguishing Focal Dystonia from Performance Anxiety57:07 Advice for Preventing Focal Dystonia01:05:42 Raising Awareness and Final ThoughtsResources Mentioned:mysterytomastery.comYou've been listening to Trumpet Dynamics, telling the story of the trumpet, in the words of those who play it. To learn more about the show, and to join the Trumpet Dynamics tribe, visit us on the web at trumpetdynamics.com.And be sure to tap the subscribe button on your phone so you're always up to date with new episodes as they release.Thank you for listening!

Renzo Huber is a staff scientist at NIH. We talk about his work on layer-fMRI: what it  is, how Renzo got into it, how to do it, when it makes sense to do it, what the future holds, and much more.Support the show: https://geni.us/bjks-patreonTimestamps0:00:00: How Renzo got into high-resolution fMRI0:11:28: The difference between 3T and 7T fMRI0:22:46: Is a bigger fMRI scanner always better?0:33:35: Layer-fMRI0:56:28: For what types of research is layer-fMRI most useful?1:02:35: How to do layer-fMRI and make it reproducible1:19:21: The future of layer-fMRI1:27:02: A book or paper more people should read1:30:37: Something Renzo wishes he'd learnt sooner1:33:11: Advice for PhD students/postdocsPodcast linksWebsite: https://geni.us/bjks-podTwitter: https://geni.us/bjks-pod-twtRenzo's linksWebsite: https://geni.us/huber-webGoogle Scholar: https://geni.us/huber-scholarTwitter: https://geni.us/huber-twtBen's linksWebsite: https://geni.us/bjks-webGoogle Scholar: https://geni.us/bjks-scholarTwitter: https://geni.us/bjks-twtReferences and links mentionedEpisode with Peter Bandettini: https://geni.us/bjks-bandettiniEpisode with Emily Finn: https://geni.us/bjks-finnRenzo's blog about layer fMRI: https://layerfmri.com/YouTube channel on layer fMRI: https://www.youtube.com/@layerfmri/Bastos, ... & Friston (2012). Canonical microcircuits for predictive coding. Neuron.Bollmann & Barth (2021). New acquisition techniques and their prospects for the achievable resolution of fMRI. Progress in Neurobiology.Boulant, ... & Le Bihan (2024). In vivo imaging of the human brain with the Iseult 11.7-T MRI scanner. Nature Methods.Finn, ... & Bandettini (2019). Layer-dependent activity in human prefrontal cortex during working memory. Nature Neuroscience.Feynman (1985). "Surely you're joking, Mr. Feynman!": adventures of a curious character.Haarsma, Kok & Browning (2022). The promise of layer-specific neuroimaging for testing predictive coding theories of psychosis. Schizophrenia Research.Huber, ... & Bandettini (2017). High-resolution CBV-fMRI allows mapping of laminar activity and connectivity of cortical input and output in human M1. Neuron.Huber, ... & Möller (2019). Non-BOLD contrast for laminar fMRI in humans: CBF, CBV, and CMRO2. Neuroimage.Huber, ... & Bandettini (2020). Sub-millimeter fMRI reveals multiple topographical digit representations that form action maps in human motor cortex. Neuroimage.Huber, ... & Kronbichler (2023). Evaluating the capabilities and challenges of layer-fMRI VASO at 3T. Aperture Neuro.Huber, ... & Horovitz (2023). Laminar VASO fMRI in focal hand dystonia patients. Dystonia.Persichetti, ... & Martin (2020). Layer-specific contributions to imagined and executed hand movements in human primary motor cortex. Current Biology.Polimeni, ... & Wald (2010). Laminar analysis of 7 T BOLD using an imposed spatial activation pattern in human V1. Neuroimage.

Chronic pain and physical limitations can feel unchangeable, but what if the body and mind had the power to heal beyond expectation?  Today, Emily Rieker shares her remarkable journey of overcoming a seven-year struggle with dystonia through Hannah Somatic's practice. Emily not only regained function in her hand but experienced profound transformations in her overall well-being.  Her story demonstrates the remarkable capacity of the nervous system to change and heal, even after years of apparent "stuckness." Listen to discover how embracing body-mind awareness can unlock new levels of freedom and healing. In this episode, Emily Rieker shares: - Her seven-year journey with dystonia and how she regained function. - The mind-body connection's role in physical and emotional healing. - The unexpected benefits of somatic work, like improved relationships. - Challenges with traditional medical approaches and misdiagnosis. - How viewing the body as a dynamic system aids holistic healing. - How physical improvements extend beyond hand function to whole-body mobility and tension release. - Encouragement to explore the potential for personal transformation through somatic movement. And so much more! Follow Aimee Takaya on:  IG: @aimeetakaya  Facebook: Aimee Takaya  Learn more about Aimee Takaya, Hanna Somatic Education, and The Radiance Program at⁠ ⁠⁠www.freeyoursoma.com⁠.⁠⁠ --- Support this podcast: https://podcasters.spotify.com/pod/show/aimee322/support

From philosophy student and activist to pioneer in early childhood intervention approaches for therapists, Karen Kangas takes us on a journey of developing clinical excellence. She is an occupational therapists with over 50 years of experience, specializing in pediatrics, seating, and augmentative and alternative communication (AAC). She has particular knowledge and expertise in working with children with significant disabilities, particularly those with dystonia and dystonic cerebral palsy. Karen beautifully bridges the gap between ‘old school' hands on approaches and a more contemporary hands-off focus on participation and real-life activities and engagement. We cover seating and positioning, standing, walking and appropriate equipment use, developing clinical skills, the magic of the barrier vest and understanding movement patterns. You'll find links to everything we discussed at https://www.wiredondevelopment.com Enjoy!

From philosophy student and activist to pioneer in early childhood intervention approaches for therapists, Karen Kangas takes us on a journey of developing clinical excellence. She is an occupational therapists with over 50 years of experience, specializing in pediatrics, seating, and augmentative and alternative communication (AAC). She has particular knowledge and expertise in working with children with significant disabilities, particularly those with dystonia and dystonic cerebral palsy. Karen beautifully bridges the gap between ‘old school' hands on approaches and a more contemporary hands-off focus on participation and real-life activities and engagement. We cover seating and positioning, standing, walking and appropriate equipment use, developing clinical skills, the magic of the barrier vest and understanding movement patterns. You'll find links to everything we discussed at https://www.wiredondevelopment.com Enjoy!

Intro After brain injury, some of us are left with limbs and bodies that no longer function the way we are used to. Others have neurologic disorders that do something similar. One condition that does this is called dystonia. Dystonia is a movement disorder that causes muscles to spasm and contract resulting in abnormal postures, twisting, and repetitive movements. In this week's episode, Margaux Galli, the leader of the NYC Dystonia Support Group provides education on dystonia sharing her lived experience with the condition. She offers resources for those suffering with the condition along with information on how to join the support group. Listen to learn more!SummaryIn this episode, Margaux Galli, a member of a dystonia advocacy group, shares her experience living with dystonia, a movement disorder. She discusses the symptoms and causes of dystonia, including involuntary movements, abnormal postures, and tremors. Margaux emphasizes the importance of finding a specialist who listens and understands the condition, as well as exploring different treatment options such as Botox injections and physical therapy. She also highlights the value of peer support and the role of peer-run organizations in providing patient-centered care. Margaux's advocacy work focuses on raising awareness and creating a community for individuals with dystonia. The conversation covers various topics related to dystonia, including the role of physiatrists in treatment, the experience of pain, the challenges of researching complementary therapies, the importance of self-advocacy and support networks, and the impact of dystonia on relationships and identity. The most common theme that arises is the feeling of isolation among individuals with dystonia. Margaux encourages people to join support groups and find healing communities where their voices can be heard.Keywordsdystonia, movement disorder, involuntary movements, abnormal postures, tremors, specialist, treatment options, Botox injections, physical therapy, peer support, peer-run organizations, patient-centered care, advocacy, dystonia, physiatrists, treatment, pain, complementary therapies, self-advocacy, support networks, isolationTakeaways· Dystonia is a movement disorder characterized by involuntary movements, abnormal postures, and tremors.· Finding a specialist who listens and understands the condition is crucial for effective treatment.· Treatment options for dystonia include Botox injections and physical therapy.· Peer support and peer-run organizations play a vital role in providing patient-centered care and creating a sense of community for individuals with dystonia. Physiatrists can help with joint issues and provide injections, but specialized neurospecialists may be needed for certain treatments.· Dystonia can be a painful condition, and pain medication may not always be effective. Medications for mood can also help with involuntary movement.· When researching complementary therapies, it's important to approach alternative treatments safely and consider the risk-benefit ratio.· Self-advocacy and finding a supportive network are crucial for individuals with dystonia.· Dystonia can lead to feelings of isolation, and joining support groups can provide a sense of community and understanding.· It's important to communicate with healthcare providers and ask questions to ensure that your needs are being addressed.· Managing dystonia often involves a combination of approaches,

**Please be sure to catch the link to a powerful testimonial about Greg's practice below! JN In this episode, Greg Spence of Mystery to Mastery and Denver-based amateur trumpeter Julie Baxes discuss experiences and strategies for overcoming focal dystonia. Recorded at the recent ITG conference in Anaheim, Julie shares her near-recovery journey from dystonia, while Greg explains how his Mystery to Mastery program unintentionally became a beacon for dystonia sufferers. Julie candidly describes her initial focal dystonia symptoms, her reconnection with Greg during COVID, and the intensive process of understanding and managing the condition. She recounts her personal struggles, including a misinterpretation of feedback from a conductor,which led to a great deal of personal shame. Ultimately this led to a loss of control of her physical abilities, and even a sense of isolation from the music community.Listen to Julie recount her determined comeback into the ranks of performing artists through patience, a conscientious mindset re: music and finding her place in her local scene given her experiences.Emphasized throughout the interview is the importance of stillness, error detection, and a step-by-step approach to remapping neural pathways. Julie and Greg both stress the need for open conversations about focal dystonia in the musician community and the importance of catching early signs. The episode closes with advice for those potentially facing the condition and a call to action for orchestras and universities to support affected musicians.Episode highlights01:46 Julie's Journey with Focal Dystonia02:07 Greg's Teaching Approach04:00 The Mystery to Mastery Program05:50 Understanding Stillness and Anxiety14:00 Julie's Personal Struggles34:23 The Challenge of Achieving Stillness35:35 The Importance of Closing Your Eyes37:16 Understanding Focal Dystonia39:47 The Error Trilogy: Detection, Rejection, Correction40:40 Personal Experiences and Techniques41:52 The Role of Psychological Factors43:22 The Journey to Recovery49:12 The Importance of Open Communication53:59 Distinguishing Focal Dystonia from Performance Anxiety56:07 Advice for Musicians to Prevent Focal Dystonia01:04:39 Final Thoughts and EncouragementResources mentioned:Mystery to Mastery"Greg Spence Changed My Life" videoAbout the guests:Julie Baxes is an amateur trumpet player who began her music journey as a pianist, performing with church choirs, in small ensembles and for weddings and other special occasions. She picked up trumpet in her mid 40s and has studied with a variety of teachers over the years, most recently working exclusively with Greg Spence for the past 4 years. Julie has performed with the Jeffco Community Band, Jeffco Brass (for wedding receptions, civic events, church services and retirement communities), university jazz and concert bands, and the Rocky Mountain Brassworks, a British-style brass band that performs in Denver metro area venues. Julie has worked in the marketing communications and public affairs field for more than 30 years as a writer, editor, public speaker, staff manager, marketing and public affairs strategist, and special events manager. She holds a BA in journalism and a marketing minor from Arizona State University. ___Greg SpenceFrom a...

Dr. Sara Schaefer interviews Dr. Roberto Erro on the phenotypic characteristics of essential tremor, essential tremor with soft dystonic signs, and tremor combined with dystonia through analysis of The Italian tremor Network (TITAN) data. Read the article.

Clayton Haslop's journey as a violinist has been nothing short of extraordinary. At just 18, he joined the Los Angeles Chamber Orchestra and rose to become its concertmaster. Over the years, he also served as concertmaster for the Los Angeles Opera Orchestra and contributed his talents to numerous iconic film scores, including Titanic, The Matrix, and many others. But Clayton's path wasn't always smooth. In his forties, he faced a daunting challenge when he was diagnosed with Focal Dystonia in his left hand. Despite years of struggle and bouts of depression, Clayton made a remarkable comeback by relearning to play the violin using only two fingers on his left hand. I'm especially honored to have this conversation with Clayton, as we were roommates in Santa Monica in the early 1980s. Although I was ten years his senior, I learned so much from him during those years. Speaking with him on this podcast is truly a privilege.In Part 1 of our conversation, we delve into what it's like to be a concertmaster for some of the top studio orchestras, the experience of working on blockbuster films like Titanic and The Matrix, and collaborating with renowned film composers, each with their unique personalities and approaches to recording sessions. We also explore Clayton's early years, including his studies with the legendary violinist Nathan Milstein, and discuss the beginnings of his career along with some key concepts from his Violin Mastery Course.In Part 2 [Subscriber Content], Clayton delves into the profound challenges he faced after being diagnosed with Focal Dystonia. Drawing inspiration from the legendary guitarist Django Reinhardt, who famously played with only two fingers on his left hand, Clayton reimagined his own technique to continue playing the violin at an exceptional level. He shares the physical and mental strategies that enabled him to overcome this seemingly insurmountable obstacle. Beyond the technical adjustments, Clayton talks about his deep musical connection with the members of an assisted living community.Would you like more inspirational stories, suggestions, insights, and a place to continue the conversations with other listeners? Visit anthonyplog-on-music.supercast.com to learn more! As a Contributing Listener of "Anthony Plog on Music," you'll have access to extra premium content and benefits including: Extra Audio Content: Only available to Contributing Listeners. Podcast Reflections: Tony's written recaps and thoughts on past interviews, including valuable tips and suggestions for students. Ask Me Anything: Both as written messages and occasional member-only Zoom sessions. The Show's Discord Server: Where conversations about interviews, show suggestions, and questions happen. It's a great place to meet other listeners and chat about all things music! Can I just donate instead of subscribing? Absolutely! Cancel at anytime and easily resubscribe when you want all that extra content again. Learn more about becoming a Contributing Listener @ anthonyplog-on-music.supercast.com!

Dr. Sarah Camargos interviews Dr. Giovanna Zorzi on the outcomes of a cohort of non-degenerative pediatric patients with idiopathic and genetic dystonia who were submitted to GPi-DBS and compares these outcomes with a meta-analysis of the literature. Journal CME is available until July 24, 2025 Read the article.

Send us a Text Message.You are going to love today's episode! Barbara Banacos is an inspiration. As a young pianist, she endured an injury that manifested itself as a form of dystonia. This is significant because it is not well-understood in the medical community. The Taubman Approach can help you if you are struggling with a devastating injury. Some of us are experiencing devastating injuries in regards to playing the piano. We are here to help! Go to Golandskyinstitute.org and we will get you connected to a teacher to help you. If you could list my website and social media in the show notes I'd greatly appreciate it!Website: www.barbarabanacos.comInstagram.com/barbara.banacosFacebook: Barbara Banacos Piano Studioyoutube.com/@barbarabanacosBarbara Banacos is the daughter of world-renowned jazz educator Charlie Banacos and pianist/educator Margaret Banacos. She began teaching in her mother's studio in 1997. Ms. Banacos teaches children and adults from beginner to advanced levels with a focus on classical music and offers advanced technical training in the Taubman Approach. While completing her undergrad and graduate degrees in music from CUNY Hunter College, Ms. Banacos ran a private studio in Millburn/Short Hills, NJ and taught at Montclair State University Preparatory School. Since returning to the Boston area in 2003, Ms. Banacos teaches in-home private lessons in Lexington and Winchester, MA and at her home studio in Hamilton, MA. She has also taught remotely since 2010, reaching students as far away as Malaysia and New Zealand.One of only three teachers in the Boston area certified in the Taubman Approach, Ms. Banacos has studied with Robert Durso of the Golandsky Institute since 1997. She is certified at the Associate level with the Golandsky Institute, is adjunct faculty for their annual summer symposiums at Princeton University and has led their support groups for many years. She has presented lectures on piano technique at the Golandsky Institute Boston Workshops and was invited to teach at the Danilo Pérez Foundation in Panama, assisting Edna Golandsky. Check out the Golandsky Institute and info/videos about the Taubman Approach here. Other significant teachers include Edna Golandsky, Charlie Banacos, Garry Dial and Lefteris Kordis.Ms. Banacos has performed as a soloist, accompanist and in numerous piano duos with her favorite duet partner, Margaret Banacos.(If you are looking to study the lessons of Charlie Banacos via online lessons taught by Garry Dial, click here for more information or inquire by emailing Barbara at charliebanacos@gmail.com)This Summer, Edna Golandsky, renowned pedagogue and leading expert on the Taubman Approach will release her first book with Amplify Publishing Group. Entitled ‘The Taubman Approach To Piano Technique: A Comprehensive Guide To Overcome Physical Limitations and Unlock Your Full Pianistic Potential.' Visit: www.ednagolandsky.com to learn more.The Golandsky Institute's mission is to provide cutting-edge instruction to pianists based on the groundbreaking work of Dorothy Taubman. This knowledge can help them overcome technical and musical challenges, cure and prevent playing-related injuries, and lead them to achieve their highest level of artistic excellence.Please visit our website at: www.golandskyinstitute.org.

Today's episode features an interview with trombonist/publisher David Vining, recorded at the 2024 ITG Conference in Anaheim, California.David was diagnosed with focal dystonia in 2003. In our interview, he discusses his struggles, eventual recovery through holistic movement therapies such as Feldenkrais, Alexander Technique, and body mapping and exposing the vastly understudied diagnoses and treatment of focal dystonia.Perhaps the biggest misconception about focal dystonia is that it is a physical problem. While the symptoms manifest in the physical realm, it is a distinctly neurological issue which disrupts musicians' fine motor skills.David's diagnosis and eventual recovery inspired him to establish Mountain Peak Music, which offers resources and materials aimed at promoting healthy playing and living habits, as well as taking a preventative approach to issues like dystonia.Episode Highlights:01:25 David Vining's Musical Journey04:37 The Onset of Focal Dystonia05:43 Diagnosis and Initial Struggles09:24 Exploring Treatment Options18:34 Movement Therapies and Recovery25:29 Redefining Embouchure and Global Awareness26:46 Rafael Mendez a Model of Overcoming Adversity27:54 Recovering from Focal Dystonia29:33 Founding Mountain Peak Music30:19 The Breathing Book and Body Mapping32:32 Innovative Learning Materials36:49 Success Stories and Cross Training45:02 Challenges with High Brass Players46:42 Final Thoughts and AdviceResources mentioned:Mountain Peak MusicAbout the Guest:Trombonist David Vining is the founder of Mountain Peak Music, a publishing company devoted to offering innovative, healthy teaching methods for all musicians. Mountain Peak Music represents Mr. Vining's personal mission, combining his extensive performing and teaching background with insights learned through his remarkable recovery from embouchure dystonia. His Mountain Peak Music publications include the Breathing Book series, Flow Studies, Daily Routines, Long Tone Duets, Trombone Intonation Mastery, Dueling Fundamentals for Trombones, Cross Training for Musicians, The Big Book of Sight Reading Duets, Teaching Brass, and Rangesongs.Currently Professor of Trombone at Northern Arizona University in Flagstaff, Arizona, Mr. Vining has also served on the faculties of the University of Cincinnati's College-Conservatory of Music and the University of Kansas. Professor Vining's teaching transcends his trombone specialty, covering a wide range of topics appealing to musicians of every discipline. He is equally at home teaching trombone technique, helping instrumentalists and vocalists become more efficient, and helping musicians cope with injuries, among other topics.Mr. Vining is a dynamic performer who has delivered hundreds of recitals nationwide. As trombonist with the Chestnut Brass Company, he recorded several CD's and toured the United States and Europe performing recitals, masterclasses, and concerts with orchestras. Currently a member of the Flagstaff Symphony, he has performed with the Cincinnati Symphony, Kansas City Symphony and the Philadelphia Orchestra. Mr. Vining has appeared on college campuses coast-to-coast in recital and as a guest soloist with ensembles, and recorded a solo CD, Arrows of Time.Body + Mind + Spirit = Mastery. Now available is a collection of excerpts from some of the most popular...

We welcome to the podcast Marcus Reynolds, who with his Stratos Brass device has provided a beacon of hope for the thousands of brass players across the globe who struggle with embouchure issues. Like many great triumphs in life, Marcus' journey to becoming a tireless promoter of safer and healthier brass playing began with a tragedy. A major lip injury completely derailed Marcus' successful playing career. In an instant his sole source of income and personal identity was gone. In this episode, Marcus shares in-depth the painful - both physical and psychological - road to recovery, and how a mysterious "nocturnal hieroglyphic" ultimately became the inspiration for a device that is changing lives for the better. Indeed it is no exaggeration to say that Marcus' tireless efforts have even extended playing careers that once appeared to have reached their end. Enjoy the episode! Episode highlights: -Belief in the mission compels a tireless promotion of the solution for the problem...01:55 -A catastrophic lip injury set Marcus through the extreme depths and heights of human emotion...03:50 -The psychological damage was just as profound as the physical...09:35 -A "nocturnal hieroglyphic" circa 2008 is ultimately the genesis of the Stratos Brass device....11:05 -You become a self-psychologist when your identity is taken away from you...18:10 -Clarifying the "upstream" and "downstream" of air flow...24:40 -Success stories from high-profile musicians who've worked with Marcus and his invention...27:30 -The basic physiology of what's going on with your body when you use the Stratos device...33:00 -How Marcus' personality and self-perception has changed after becoming a quasi-celebrity in the brass world...45:05 -"It's very possible that you've had a greater impact in light of that accident than you ever would have had you stayed perfectly healthy"... 54:50 -Plus whatever your discerning ears deem worthy of your time and interest... Resources mentioned: Stratos Brass Brass Mastery podcast w/ Larry Meregillano About the Guest: "I am a brass instrument tutor of over 40 years experience in both the private and local government sectors. As well as general brass teaching, I also specialise in embouchure development and rescue for brass players. Building on my experience as a teacher and professional musician I am also the creator of the unique STRATOS Embouchure System. I am also an author of ‘Range without Resistance'. Stratos Encore Pro is an adaptable and adjustable embouchure system that can be fitted to virtually all brass instruments to help players adapt and improve their embouchure. I have also written a series of articles on the brass embouchure which have been published in Brass Band World, Brass Herald and British Trombone Society Magazine. As a professional musician I have over 30 years experience of recording music and performing live, both as a lead trombonist and a solo artist. I also have many years experience in the role of musical director for several big bands and brass ensembles. I currently play a Rath R12 trombone which I co-developed with Michael Rath Trombones." Body + Mind + Spirit = Mastery. Now available is a collection of excerpts from some of the most popular episodes of the Trumpet Dynamics podcast featuring the likes of Chris Coletti, Sergei Nakariakov, Manny Laureano, and more.It's a FREE download available right now on brassmastery.com!Mentioned in this...

It's also a great privilege for me to share today's interview with Kara Goucher.  Kara is a two-time Olympian, World Championship medalist, and one of the most accomplished and admired long-distance runners of our time.  Beyond her competitive achievements, Kara is also a passionate advocate for clean sport and gender equity, an inspiring speaker, author, podcaster and NBC broadcaster for track and field.  She's someone who continues to inspire runners of all levels. As we'll talk about in this interview, two years ago, Kara began slipping while she was running.  And after seeing multiple doctors, she was diagnosed with Runner's Dystonia, a neurological disorder with some similarities to Parkinson's.  Many of you may remember the interview I did with my friend, and fellow Team Foxer, Justine Galloway, who also has Runner's Dystonia.  So this is something we'll also talk about in this episode. Kara also as a unique and hard-won perspective on the power of brands to affect social change, and the power that we have as people– individually and collectively– to move and work with them to do so.   Most recently, Kara has partnered with Brooks Running, a brand that holds a very special place in our hearts here at Charity Miles.  Whenever we ask you what brands you want us to partner with, Brooks is always the #1 response. Which is why we are so thrilled to also be partnering with Brooks this year. For over a century, Brooks has been propelled by a never-ending curiosity with how humans move. It drives their every decision and every innovation. Because they believe movement is the key to feeling more alive. And we're all moving towards something. It could be the top of a mountain, a first-ever 5K, or peace of mind after a stressful day.  It could be a cure for Parkinson's, a cleaner planet, fair play. So… let's run there. With gear and experiences specifically designed to take you to that place. Whether it's a headspace, a feeling, or a finish line. Let's run there. Head to BrooksRunning.com to learn more.  

What are the stigmas and stereotypes attached to cerebral palsy? What is daily life with dystonia like? What is cerebral palsy and how does it develop?In this podcast, Thomas Henley talks to Emma Stone, a cerebral palsy advocate (dystonia) and decorated horseriding athlete, currently studying a variety of Work Preparation modules in college and working in a local cafe.Within this podcast, Emma aims to dispell stigma and stereotypes around cerebral palsy and bring more awareness to them and share the more intimate negative experiences they've gone through in daily life, school, physio, surgery and healthcare. She also highlights the life lessons she's picked up and details her top tips for other individuals with cerebral palsy.Thomas's Links: https://linktr.ee/thomashenleyUK⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Emma's Blog: https://estoneblogersa.blogspot.com/?m=1Chapters: 00:00 - 01:24 Introduction01:24 - 05:09 Surgery and Deep Brain Stimulation (DBS)05:09 - 08:24 Who Is Emma Stone?08:24 - 10:55 What Is Cerebral Palsy?10:55 - 14:19 Developing Cerebral Palsy14:19 - 21:27 Living With Dystonia21:27 - 32:36 Escaping Isolation With Cerebral Palsy32:36 - 37:02 Navigating Healthcare with CP37:02 - 39:38 Horse riding Achievements39:38 - 46:45 Tips for Living With Cerebral Palsy46:45 - 49:08 Identity vs Person first language49:08 - 56:05 Stigma and Stereotypes56:05 - 01:02:56 Final ThoughtsSong Of The Day (Listen Here) - ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://open.spotify.com/playlist/5UDIyN5TSYN4zMcRoQPrG8?si=9255ed3480d840b5⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Subscribe to the channel to get notified when I next go live

Ruth Chiles is a specialist in Focal Dystonia and, as a musician herself, she works particularly with musicians. She's created support groups, hours and hours of video, appeared in many interviews, and written a book, (with another book on the way!) Links to her work are below.Tune into this episode to hear Jim ramble on incessantly, proving that Ruth is a very patient and gracious listener. Obviously an excellent person to work with!Here's a link to her website: https://focaldystoniacure.com/Here's a link to her YouTube channel: https://www.youtube.com/@FocalDystoniaCureHere's a link to her Facebook page: https://www.facebook.com/focaldystoniacure/Here's a link to her Facebook learning-community group: https://www.facebook.com/groups/focaldystoniacurelearningcommunity-We're on Facebook: https://www.facebook.com/DroningOnPodcastAnd Instagram: https://www.instagram.com/droning.on.podcast/-You can write-in to the show with comments, ideas, requests, etc. at TheDroningOnPodcast@gmail.com-Support the show via Patreon (patreon.com/DroningOnPodcast), or by buying cool stuff at BagpipeSWAG.com - - - And now, some keywords: Bagpipes, bagpipe, bag, pipe, pipes, pipe, band, pipeband, Scottish, small, drone, droning, chanter, highland, lowland, uilleann, smallpipes, trad music, focal dystonia, musician's dystonia, dystonic symptoms, task-specific dystonia

On this episode, Matt & Andrea have the privilege of interviewing Olympian Kara Goucher. Kara's just released her book, the Longest Race, Inside the Secret World of Abuse, Doping, and Deception on Nike's Elite Running Team. They cover many facets of Kara's story, from her current struggles with runner's dystonia to her integral part in exposing the Nike Oregon Project and Alberto Salazar. They also discuss how excel at any fitness level, finding joy in running by feel, and encouraging female runners of all ages. Kara Goucher is a three-time NCAA champion, two-time Olympian, winner of the silver medal at the 2007 World Championships in the 10,000 meters, and a podium finisher at the Boston and New York Marathons. She is a running analyst for NBC Sports. She cohosts the hit running commentary podcast Nobody Asked Us with Des & Kara, as well as the Clean Sport Collective podcast, promoting fair play in sports. She lives in Boulder, Colorado, with her Olympic-runner husband, Adam, and their son, Colt. Her website is KaraGoucher.com. Report at the links below if you have experienced abuse or misconduct, or if you have reasonable suspicion of abuse or misconduct inflicted on, or by, someone in the U.S. Olympic and Paralympic Movement, which includes USATF. There are no associated costs, fees, or other financial barriers attached to submitting a report. The reporting form available when clicking the ‘Report Abuse or Misconduct' button allows for reports to be made anonymously.https://uscenterforsafesport.org/report-a-concern/https://www.usatf.org/safe-sport/reporting-a-safe-sport-complaintIf you or someone you know needs help with disordered eating, please consult these resources:https://www.nationaleatingdisorders.org/resource-center/https://fastr.stanford.edu/resources/ Chapters 0:00: - Intro 2:16: - If you could change one thing about the sport of running, what would it be? 16:09: - How to find your own excellence level 20:34: - Kara's runners dystonia diagnosis 32:02: - How shoe choice effects dystonia 40:17: - Learning to live & train with dystonia 44:50: - Kara's new book 49:09: - The impacts of Kara's testimony about the Nike Oregon Project 53:44: - The role of SafeSport in protecting athletes 1:00:51: - Improving female athlete's health as they grow and age 1:12:12: - Wrap-up We're offering a chance to win a $100 Running Warehouse Gift Card! TO ENTER: Drop a comment in our Sunday YouTube episode for this podcast, and let us know what we should title this series! About the Contest We're excited to share that we're partnering with Running Warehouse for not one, not two, but eight giveaways in the coming weeks. All you have to do to enter this week is leave a comment about what shoe you're excited for to enter for a chance to win a $100 dollar gift card to Running Warehouse. (If you left a comment in last week's video, we'll count it this time, but in the future it'll be the same podcast's Sunday drop!) The contest is open through Friday the 29nd at 9 PM EST. Only US residents are eligible to enter.  Please respond to our account only for winner announcements. We'll reach out to you on how to get the $100 Gift Card. --- Support this podcast: https://podcasters.spotify.com/pod/show/doctors-of-running/support

MedLink Neurology Podcast is delighted to feature selected episodes from BrainWaves, courtesy of James E Siegler MD, its originator and host. BrainWaves is an academic audio podcast whose mission is to educate medical providers through clinical cases and topical reviews in neurology, medicine, and the humanities, and episodes originally aired from 2016 to 2021. Originally released: March 1, 2018 Dystonia refers to a complex spectrum of disturbances in movement, and the differential diagnosis is even more complicated, but Drs. Andres Deik and David Coughlin make it simple. In this week's episode of the BrainWaves podcast, we'll run through the basics of a dystonia differential and approach to managing patients with these complex symptoms. Produced by James E Siegler and David Coughlin. Music by Lee Rosevere, Rui, and the Freeharmonic Orchestra. BrainWaves' podcasts and online content are intended for medical education only and should not be used for clinical decision-making. REFERENCES Albanese A, Barnes MP, Bhatia KP, et al. A systematic review on the diagnosis and treatment of primary (idiopathic) dystonia and dystonia plus syndromes: report of an EFNS/MDS-ES Task Force. Eur J Neurol 2006;13(5):433-44. PMID 16722965Albanese A, Bhatia K, Bressman SB, et al. Phenomenology and classification of dystonia: a consensus update. Mov Disord 2013;28(7):863-73. PMID 23649720Skogseid IM. Dystonia--new advances in classification, genetics, pathophysiology and treatment. Acta Neurol Scand Suppl 2014;(198):13-9. PMID 24588501 DISCLOSURESAndres Deik eceived consulting royalties from Adamas therapeutics, Teva pharmaceuticals, ITF Pharma, and Cynapsus Therapeutics. His research has been funded in part by Cynapsus therapeutics and The Dystonia Coalition. David Coughlin, like Jim Siegler, has no competing financial interests to disclose.  We believe that the principles expressed or implied in the podcast remain valid, but certain details may be superseded by evolving knowledge since the episode's original release date.  

Dr. Andrea Yoo discusses what patients should know about dystonia. She describes the conditions of the movement disorder that causes involuntarily contractions of muscles. While there is currently no cure, she reviews the helpful treatments available to alleviate painful symptoms.To schedule with Dr. Andrea Yoo 

In this episode, Brain & Life Podcast host Dr. Daniel Correa interviews Justine Galloway, a runner who was diagnosed with Runner's Dystonia and continued on to break world records in backwards running. They discuss her father's Parkinson's journey, her diagnosis process, and how she continues to adapt and find motivation. Then, Dr. Correa speaks with Dr. Joseph Jankovic, a neurologist specializing in movement disorders. Dr. Jankovic explains Dystonia, what some of the risk factors are, and treatment options. Additional Resources Much More Than a Pain in the Neck: The Different Types of Dystonia Medications and Lifestyle Changes Can Help People Cope with Dystonia Easing the Weight of Dystonia Isn't Just a Story of Triumph Speaking Up About Dystonia Facing DYT1 Dystonia with Grit and Hope   Other Brain & Life Podcast Episodes on These Topics Rogers Hartmann on Beating Dystonia Billy McLaughlin on Life as a Musician with Focal Dystonia   We want to hear from you! Have a question or want to hear a topic featured on the Brain & Life Podcast? ·       Record a voicemail at 612-928-6206 ·       Email us at BLpodcast@brainandlife.org   Social Media:   Guests: Justine Galloway @rennur316; Dr. Joseph Jankovic @josephjankovic Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD

Dr. Alissa Higinbotham delves into the topic of Myoclonus-dystonia.

Author Liz Nugent and neurologist Professor Richard Walsh talk about how a condition called Dystonia causes her daily pain and the deep brain stimulation treatment that may help

Listen to me gracefully ramble about my neurological struggles and what's to come. I'm hoping it will allow my audience to connect with me on a deeper level. ____________________________________________________ "Dystonia is a neurological hyperkinetic movement disorder in which sustained or repetitive muscle contractions result in twisting and repetitive movements or abnormal fixed postures. The movements may resemble a tremor." Dystonia is not caused by stress or anxiety. There is very little awareness around Dystonia and there is no cure. Some patients are so disabled that they end up wheelchair-bound. Many Dystonia patients have social anxiety due to shame around the physical symptoms and some even have thoughts of suicide. The only current treatments are medications and Botox injections. Management therapies like physical therapy, massage, exercise, or counseling may slightly reduce symptoms in some patients, but not all. Deep Brain Stimulation (DBS) surgery is available only to approved Dystonia patients and reduces symptoms by 30-80% on average. Most Dystonia patients have tried numerous treatments without success and are left to suffer with the disabling effects. You bring more awareness to Dystonia just by listening to this episode and we thank you for that. ____________________________________________________ More resources and how to work with me here: https://linktr.ee/nerveboss --- Support this podcast: https://podcasters.spotify.com/pod/show/nerveboss/support

Laryngeal dystonia (LD) is a rare disorder affecting the vocal cords. Dr. Sarah Camargos sits down with Prof. Kristina Simonyan while she breaks down the methodology and findings of her comprehensive study investigating the temporal-spatial signature of LD. Read the article

Dr Luisa Averdunk of the University Children's Hospital in Düsseldorf discusses the investigation of a 2-year-old presenting with acute episodes of dystonia and symmetrical basal ganglia abnormalities. Will you unravel this metabolic mystery before all is revealed? See the associated image and read the full report here: https://onlinelibrary.wiley.com/doi/full/10.1002/jimd.12680

What innovations in dystonia treatments do we have to look forward to? Dr. Mark Edwards sits down with Dr. Sarah Camargos to answer that vary question. 2023 Congress virtual access

Dystonia is a mysterious condition that causes muscles to contract involuntarily. It can strike many parts of the body, making the head turn, the eyelids close, or the hand twist. We don't know what causes dystonia. It can arise after head trauma or a stroke, and it often appears in conjunction with Parkinson's disease. There is no cure, but experts like Dr. Natalie Diaz, a neurologist at PNI, can ease the symptoms with medication. A treatment you may not expect: Botox. A natural toxin, Botox prevents the release of a neurotransmitter that causes the muscles to contract. After an injection, dystonia sufferers very often find that their symptoms dissipate, and that is a welcome relief from this strange, discomforting disease.

Say high to Caroline

#238 - It's called Rocksylvania for a reason, Jenn Devore tells us, as she talks about her home state, Pennsylvania. She lives close to some very beautiful trails in the mountains of her lovely state. I enjoy looking at all the photos she shares and one day, I'll visit to try out some of those technical trails! She shares how she got started running and tells us about the charities that are close to her heart. She works very hard to spread the word about the rare disease Dystonia and tells us about it in this episode, as well as the fund raising she's doing for Dwell Orphan Care. We'll help spread the word for her. All links are on the MRTW website. The Pennsylvania running community is alive and well! Fit, Healthy & Happy Podcast Welcome to the Fit, Healthy and Happy Podcast hosted by Josh and Kyle from Colossus...Listen on: Apple Podcasts SpotifySupport the showMartha Runs the World websitehttps://www.martharunstheworld.com/Email:martharunstheworld@gmail.comInstagram:https://www.instagram.com/martha_runs_sf/

WARNING: PLEASE DO NOT DRIVE OR OPERATE ANY MACHINERY WHILE LISTENING TO HYPNOSIS. ALSO BEFORE LISTENING TO THIS SESSION, PLEASE CONSULT WITH YOUR HEALTH CARE PROVIDER IF HYPNOSIS IS RIGHT FOR YOU IN THIS CASE. This episode is by request. Dystonia is an involuntary muscle contraction that causes repetitive or twisting movements. Dystonia may affect one or more parts of the body, and sometimes the entire body. can be mild or severe. Thank you for listening to Hypnosis, deep in the mind. I hope you continue to have a wonderful day or night wherever you are from in the world. See you in the next episode.

As a young person Julie Kent was an athlete in multiple disciplines and a fierce competitor who was often forced to work through and compete in extreme pain. When she brought this aggressive mindset into her professional career her body made it very clear that she could not continue by manifesting full body dystonia.In this conversation, Julie shares her journey to wellness and regaining a competitive edge while honoring her own mental and physical needs.Julie is a private person who simply wanted to share her experience. She does not have a website or offer services.The introduction to this podcast is narrated by Rick Lamb PhD.*The information provided in this podcast is not intended to be a substitute for professional medical, psychiatric or veterinary advice or treatment. Always seek licensed medical, psychiatric, or veterinary care. Interspecies Evolution™ promotes holistic balance through an integrative treatment model defined by the National Center for Complementary and Integrative Health.Please use discernment when contracting with energy "healers" who claim to heal humans or animals in any capacity. Interspecies Evolution™ promotes self-awareness and empowerment through education and direct experience on one's own journey of remembering.www.interspeciesevolution.comFor more information about the Host, Ginny Jablonski, please refer to her website at www.heartofthehorse.us

"I feel really, really free." Kara's back! In the year since her last appearance on the Ali on the Run Show, Kara Goucher has become a New York Times best-selling author and co-host of the fan-favorite podcast, Nobody Asked Us with Des and Kara. This week, Kara heads to Eugene, OR, where she'll be on the NBC broadcast calling the men's and women's distance events at the USATF Outdoor National Championships. (Here's how to watch.) In this episode, we're talking about some of the standout storylines to watch at this year's races. Plus, what life has been like since Kara's book, The Longest Race, came out earlier this year, chatter about the fun things professional athletes don't know about (how much race photos cost!), an update on Kara's running (Boston 2024?!), and so much more. SPONSORS: UCAN: Click here to get a FREE Edge sample pack (you'll just pay the cost of shipping), and use code ALI23 for 20% off your next UCAN order. Vuori: Click here for 20% off your first Vuori purchase. What you'll get on this episode: What it's like being Kara Goucher in downtown Duluth, MN (2:45) All about Kara's role at this year's USATF Outdoor National Championships on CNBC (4:30) What to know about this year's distance races at USAs (11:00) How Kara feels about heading back to Eugene, OR — and where's the hype? (22:40) An update on Kara's running, and the latest on her life with runner's dystonia (34:25) On race photos, and professional photographers, Venmo, and more (40:30) What's next for Kara Goucher, distance analyst, and her thoughts on the 2024 U.S. Olympic Marathon Trials in Orlando (47:45) What's next for Kara Goucher, co-host of Nobody Asked Us with Des & Kara (55:00) On life since the release of Kara's book, The Longest Race (58:30) For more, check out: Kara Goucher on Episode 525 of the Ali on the Run Show Kara Goucher on Episode 411 of the Ali on the Run Show Kara Goucher on Episode 43 of the Ali on the Run Show Kara Goucher on Episode 86 of the Ali on the Run Show Kara and Adam Goucher on Episode 208 of the Ali on the Run Show Follow Ali: Instagram @aliontherun1 Join the Facebook group Twitter @aliontherun1 Support on Patreon Subscribe to the newsletter SUPPORT the Ali on the Run Show! If you're enjoying the show, please subscribe and leave a rating and review on Apple Podcasts. Spread the run love. And if you liked this episode, share it with your friends!

One of the pioneers in dystonia research and treatment joined us today on the show! We were thrilled to sit down with Dr. Nancy Byl to hear about her fascinating career and take a tiny peek into her knowledge-filled brain. She is a leading expert on treating dystonia and has a comprehensive approach to working with individuals with dystonia that includes improving their stress, lifestyle and sleep in addition to training motor control. However, sensory processing is an often overlooked and misunderstood aspect critical to recovery. Dr. Byl believes variety and fun are key components in rehabilitation and describes interesting ways she incorporates it into all of her treatment sessions, no matter whom she's working with. She's a huge supporter for the physical therapy profession and continues to advocate for advancements in care, research, and access. She is an incredible role model and human being. We can't wait for you to learn more about Dr. Byl in this episode!!  

Welcome to Sport Inspires: a podcast recorded in collaboration with The Mary Peter's Trust and made possible by the Coca-Cola Thank You Fund. Today's episode is with Claire Taggart, the 2022 Boccia World Champion and the first person from Northern Ireland to ever compete at the Paralympics in the sport. In today's episode we talk about: What boccia is (and why it's “way better than bowls!”) Being diagnosed with a neurological condition at the age of 18 How Claire got into the sport The logistics of travelling with an eletric wheelchair Why boccia is a “nail-biting sport” The opportunties being a professional athlete has brought into Claire's life And advice she would give to her 18-year-old self. Check it out! Claire's Etsy: https://www.etsy.com/shop/NiftyNotebooksUK The 200 Club: https://marypeterstrust.org/club200/ // https://bestofbelfast.org/stories/claire-taggart //

In part 5 of the Dystonia Special Series, Dr. Francesca Morgante interviews Dr. Jill Ostrem about current and future approaches to treatment of dystonia.

In part 4 of the Dystonia Special Series, Dr. Francesca Morgante interviews Dr. Anna Sadnicka on the neural roots of dystonia.

As part of the Dystonia Special Series, Dr. Francesca Morgante interviews Prof. Carolyn Sue on the Genetic landscape of dystonia.

Learn about American patriot pancake mix, the pancake mix you can't cancel! We should, however, fake some of the disease and disorder fakers we talk about.Write us some of your cringe stories at [nervouslaughterpodcast@gmail.com](mailto:nervouslaughterpodcast@gmail.com)The socials: [Instagram](https://www.instagram.com/nervouslaughterpodcast) | [Facebook](https://www.facebook.com/NervousLaughterPodcast) | [Twitter](https://twitter.com/NervouslaughPod)

After learning about 3 x Boston Marathoner, Justine Galloway's journey on the Today Show, we had to reach out to se if she would share her story on the podcast. We are so grateful that Justine agreed to do so! Justine, a former runner for Rutgers University and a 3:16 marathoner, was diagnosed with Runner's Dystonia at age 31 after suddenly not being able to run without extreme difficulty. Rather than quit the sport, she figured out a way to keep moving forward…by running backwards. Since her diagnosis, Justine has run 7 half marathons and the New York City Marathon backwards. In doing so, she set two World Records. What is most inspiring about Justine is her ability to take a seemingly insurmountable obstacle and turn it into an opportunity. Justine can be found on Instagram at Rennur316. Give her a follow and help her inspire others to overcome seemingly impossible challenges. Speaking of obstacles, don't miss our bonus interview with the amazing Noah S., Lisa's nephew, at the end of the episode. --- Send in a voice message: https://anchor.fm/runfartherandfaster/message

Cheyenne began experiencing symptoms at age 6 of loosing control of her motor skills. After two Years of misdiagnosis and doctors claiming she was doing this to herself she was finally diagnosed with "Dystonia". A Neurological disorder that affects your ability to control your muscle movements. She talks about her Deep Brain Stimulation Surgery and how it helps her control her movements now. While Dystonia is degenerative she is now in her early 20's and living life to the fullest. She shares about what it was like to loose the ability to walk and talk then gain it back again. How she navigated the waters of high school and being bullied. We talk about how she met her French Husband who God has used to bless her both in marriage and adventures beyond what she ever thought possible! She Loves Jesus and is incredibly joyful and gives some real tips on living with disorders and disabilities with joy! Wether you or someone you know is living with a disability or just walking through painful things I know our conversation will give you a dose of hope! SHARE with anyone who might need a little hope and joy today! You can find and Follow Cheyenne on Instagram @cheyenne_raineri You can find the show notes on my website along with all the links to what we talked about in the show: marriedrogersneighborhood.com You can sign up HERE for a free preview and to enroll in our online Pre Marital Guidance course Follow and interact with Caroline on social platforms at: Instagram: @marriedrogersneighborhood Facebook: @marriedrogersneighborhood Twitter: @marriedrogers Clubhouse: @marriedrogers YouTube Channel: Married Rogers Neighborhood You can subscribe to receive and email newsletter keeping you informed of coming content. (We promise not to spam you) Podcast Music Composed and performed by Jamie Miller If you would like more information on Jamie's Song Writing and performing services you can ask Caroline on any of the above platforms listed for her official contact info. --- Send in a voice message: https://anchor.fm/housewivesofthekingdom/message Support this podcast: https://anchor.fm/housewivesofthekingdom/support

In this episode, Dr. Audrey Nath speaks with writer, producer, and dystonia advocate Rogers Hartmann. Rogers describes her struggles with generalized dystonia that caused her head to tilt below her waist and the treatments she received to allow her to stand straight again. Next, Dr. Nath is joined by Dr. Marta San Luciano, associate professor of Neurology at University of California, San Francisco. Dr. San Luciano discusses dystonia and the various treatments and therapies that are available for someone who is diagnosed with a movement disorder.    Additional Resources:    https://www.brainandlife.org/disorders-a-z/dystonias/   https://www.brainandlife.org/articles/how-accepting-my-dystonia-improved-my-health   https://www.brainandlife.org/articles/5-lessons-nature-has-taught-me-about-living-with-dystonia   Social Media:    Guests:  Beat Dystonia @beatdystonia (Twitter) and Beat Dystonia (Facebook); Rogers Hartmann @auntrogers (Twitter); Dr. Marta San Luciano @MartaSanLucian1 (Twitter)  Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Audrey Nath @AudreyNathMDPhD  

I'm very excited to share my conversation with Halli Castro, local author and published poet, about transitioning from a reading naysayer to prolific writer, the decision to share her innermost thoughts and feelings surrounding her life with Dystonia in the poetry collection Neuromuscular: A Poetic Exploration of Identity in Dystonia, how the idea to write about space pirates evolved into a Sci-Fi series of short stories called The Acowell Chronicles, her involvement in bringing Disability Book Week to Corpus Christi, and why authors should be mindful of responsible representation in episode 180.

Following a motor vehicle accident, a client has dystonia—a neurological problem with muscle tone. She is using two powerful muscle relaxants: Botox injections and a baclofen intrathecal pump. Is there anything massage might do to help? Not only is the answer yes, but we even have some data to back it up!   Sponsors:     Books of Discovery: www.booksofdiscovery.com     Advanced-Trainings: www.advanced-trainings.com   Host Bio:                    Ruth Werner is a former massage therapist, a writer, and an NCBTMB-approved continuing education provider. She wrote A Massage Therapist's Guide to Pathology, now in its seventh edition, which is used in massage schools worldwide. Werner is also a long-time Massage & Bodywork columnist, most notably of the Pathology Perspectives column. Werner is also ABMP's partner on Pocket Pathology, a web-based app and quick reference program that puts key information for nearly 200 common pathologies at your fingertips. Werner's books are available at www.booksofdiscovery.com. And more information about her is available at www.ruthwerner.com.                    Recent Articles by Ruth:          “Unpacking the Long Haul,” Massage & Bodywork magazine, January/February 2022, page 35, www.massageandbodyworkdigital.com/i/1439667-january-february-2022/36.   “Chemotherapy-Induced Peripheral Neuropathy and Massage Therapy,” Massage & Bodywork magazine, September/October 2021, page 33, http://www.massageandbodyworkdigital.com/i/1402696-september-october-2021/34.           “Pharmacology Basics for Massage Therapists,” Massage & Bodywork magazine, July/August 2021, page 32, www.massageandbodyworkdigital.com/i/1384577-july-august-2021/34.       Resources:    Pocket Pathology: https://www.abmp.com/abmp-pocket-pathology-app   Botox for cervical dystonia: Effectiveness and more (2022). Available at: https://www.medicalnewstoday.com/articles/drugs-botox-for-cervical-dystonia (Accessed: 13 September 2022).   Frei, K. (2017) ‘Posttraumatic dystonia', Journal of the Neurological Sciences, 379, pp. 183–191. Available at: https://doi.org/10.1016/j.jns.2017.05.040.   Intrathecal Baclofen Pump For Muscle Spasticity Treatment (no date) Cleveland Clinic. Available at: https://my.clevelandclinic.org/health/treatments/8997-intrathecal-baclofen-pump (Accessed: 13 September 2022).   Keenan, E. et al. (2020) ‘Intrathecal baclofen pump replacements under local anaesthetic: rapid pathway implementation under COVID-19', British Journal of Neuroscience Nursing, 16(4), pp. 174–178. Available at: https://doi.org/10.12968/bjnn.2020.16.4.174. (Picture of a baclofen pump in place)   Lipnicki, M. (2020) ‘Massage Therapy for Dystonia: a Case Report', International Journal of Therapeutic Massage & Bodywork, 13(2), pp. 33–44.   ‘Trauma-induced' (no date) Dystonia Ireland. Available at: https://www.dystonia.ie/forms-of-dystonia/secondary-dystonias/environmental-factors/ (Accessed: 13 September 2022).   Traumatic Injury (no date). Available at: https://dystonia-foundation.org/what-is-dystonia/types-dystonia/injury/ (Accessed: 13 September 2022).   About our Sponsor: About Til Luchau and Advanced-Trainings.com:   As a Certified Advanced Rolfer™, Til was on the faculty of the Dr. Ida Rolf Institute® for 20 years, where he served as Coordinator and Faculty Chair of the Foundations of Rolfing Structural Integration program. The author of the Advanced Myofascial Techniques textbook series (which has been translated into 6 languages), his regular Myofascial Techniques and Somatic Edge columns have been featured in Massage & Bodywork magazine since 2009, and (along with Whitney Lowe) he co-hosts the popular Thinking Practitioner Podcast. He is the Director of Advanced-Trainings.com which since 1985 has offered short, credit-approved professional trainings and certification for manual therapists of all types, in person and online.   Website: Advanced-Trainings.com   Email: info@advanced-trainings.com   Facebook:  facebook.com/Advanced.Trainings1/   Instagram: instagram.com/tilluchau   YouTube: youtube.com/user/AdvancedTrainings  

Overview of an approach to dystonia with Drs. Aaron Bower and Sara Schaefer. Note: This podcast is intended solely as an educational tool for learners, especially neurology residents. The contents should not be interpreted as medical advice.

"It's been hard to swallow that there is no miracle. It's going to take time." It's been nearly one year since Kara Goucher came on the Ali on the Run Show to talk about what it was like being a part of the NBC Sports broadcast team during the Tokyo Olympics. Today, Kara returns with all kinds of updates. In this fun, wide-ranging conversation, Kara talks about how she has gotten more comfortable in her role as an NBC Sports Distance Analyst, and shares her broadcast plans for the summer. She talks about how she's honed her skills, and shares whether she still gets nervous to go live on air. Kara talks candidly about her recent Runner's Dystonia diagnosis, and what that means for her health, her running, and her family. Plus: parenting during difficult times, going through life as a highly sensitive person (same), and the possibility of a Kara Goucher and Des Linden podcast. SPONSOR: UCAN — Go to ucan.co/ali and use code ALI for 20% off your next UCAN order. What you'll get on this episode: What's making Kara happy today (3:30) How Kara's confidence has grown as a commentator, and how she's balancing TV jobs and motherhood (4:15) All about calling the Boston Marathon (18:00) Are Kara and Des Linden launching a podcast?! (22:10) An update on Kara's runners dystonia diagnosis, and what treatment she's trying now (26:25) All things motherhood and parenting during difficult times (42:30) For more, check out: Kara Goucher on Episode 411 of the Ali on the Run Show Kara Goucher on Episode 43 of the Ali on the Run Show Kara Goucher on Episode 86 of the Ali on the Run Show Kara and Adam Goucher on Episode 208 of the Ali on the Run Show What Made Maddy Run by Kate Fagan Follow Kara:  Instagram @karagoucher Twitter @karagoucher Facebook Clean Sport Collective Podcast Blog Follow Ali: Instagram @aliontherun1 Join the Facebook group Twitter @aliontherun1 Support on Patreon Blog Strava SUPPORT the Ali on the Run Show! If you're enjoying the show, please subscribe and leave a rating and review on Apple Podcasts. Spread the run love. And if you liked this episode, share it with your friends!