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It's no surprise that the Mediterranean diet was ranked as the best overall diet by U.S. News & World Report for the eighth year in a row. This style of eating focuses more on fueling your body with the right foods and enjoying healthy meals with others rather than following a restrictive plan. Listen to the latest episode of The Healthiest You podcast, where we talk about the Mediterranean diet with dietitian Alexa Roseberry with Lehigh Valley Health Network (LVHN), part of Jefferson Health. Can following the Mediterranean diet make you live longer? What if you don't like fish and you aren't a fan of vegetables? How can you make healthier choices going out to eat? Which one is better – the Mediterranean diet or the DASH (Dietary Approaches to Stop Hypertension) diet? Are there ways to stop the post-lunch slump? We answer these questions and more on The Healthiest You podcast this month.Chapters: · 0:01 - Intro · 1:13 - About the Mediterranean diet · 3:54 - Mediterranean diet pyramid · 6:41 - Meals with others · 10:05 - If you don't like fish or vegetables · 12:01 - Healthy fats · 17:14 - Meal ideas · 18:49 - Snack ideas · 21:12 - Dessert ideas · 24:41 - Budget and meal planning tips · 30:48 - Live longer on the Mediterranean diet · 34:54 - Daily fiber intake · 35:32 - Mediterranean diet and PCOS · 36:42 - DASH diet vs. Mediterranean diet · 38:52 - High-protein, low-carb diet · 41:26 - Nutrition tips if you've had a colectomy and have an ileostomy · 44:03 - Gaining strength back after surgery · 47:45 - Signs you're not eating enough protein · 49:44 - How to make healthier choices at restaurants · 52:38 - Stop the post-lunch slump · 54:30 - Nutrition advice
Lori was born in suburban Chicago, IL, in 1951. Her family lived in several midwestern states throughout her childhood, including Omaha, NE, Kansas City, MO, and Des Moines, IA. Her father died of a third heart attack when he was 52 years old. She was 16 years old. After his death, her mother decided to move the family to upstate New York, where her family lived. She died a year after they moved. She was 18 years old. She finished high school in Rochester, NY, received a BA in English from Buffalo State College, and an MS in instructional technology from Rochester institute of Technology. She has been a technical writer in the software industry, and moved to northern California to accept a job offer as a technical writer. She lives just north of San Jose, CA, with her cat, Daisy. She loved meat as far back as she can remember, even as a tot. However, she never liked vegetables and wouldn't eat them. No one knew much about nutrition back then, and her mom thought that giving her more potatoes might help. But that only unleashed an attraction to, and later an addiction to, carbohydrates, which was later joined by a love of sugar. Despite these emerging bad eating patterns, she was a thin, energetic, healthy child -- until adolescence. Then, the bad stuff caught up with her. She was having more digestive problems and was gaining weight. The digestive problems worsened and turned into inflammatory bowel disease, which she suffered from for nearly 3 decades. In 2019, her colon was pretty much totally destroyed, and she had a complete procto-colectomy (removal of colon and rectum). She now wears an ileostomy bag. She knew she had to change her eating, and she went through several steps -- low carb, then keto, then ketovore, then to carnivore. (A video from Dr. Berry was a game-changer.) Looking back, it's almost a miracle that she embraced carnivore and has thrown off ALL carbohydrates and ALL sugar. Her diet now comes down to two words: EAT MEAT. She's realized several blessings from the carnivore way of eating -- normalized blood pressure and blood sugar, faster healing from bruises and minor injuries, no more belly fat, no more digestive pain...and best of all, far greater mental clarity. She never believed in a million years that she would ever be able to be free of carbs and sugar! Twitter: lrmeyer747 YouTube: www.youtube.com/@CarnivoreCheer-ib7oc Timestamps: 00:00 Trailer. 00:58 Introduction. 05:32 Struggling with body image and societal expectations. 09:24 High blood pressure. 12:08 Comfort eating led to kidney infection. 12:58 Kidney stone led to infection. 16:28 Low-carb, intermittent fasting. 19:14 Demonizing meat. 23:22 Meat digests easily compared to vegetables. 25:54 Ileostomy. 28:05 HDL and triglycerides. 32:35 Managing stress. 34:36 Food-related trauma. 37:09 Never too late to start carnivore diet. 40:21 Carnivore diet accommodations. 42:26 Carnivore breakfast and lunch. 45:07 Where to find Lori. See open positions at Revero: https://jobs.lever.co/Revero/ Join Carnivore Diet for a free 30 day trial: https://carnivore.diet/join/ Carnivore Shirts: https://merch.carnivore.diet Subscribe to our Newsletter: https://carnivore.diet/subscribe/ . #revero #shawnbaker #Carnivorediet #MeatHeals #HealthCreation #humanfood #AnimalBased #ZeroCarb #DietCoach #FatAdapted #Carnivore #sugarfree
Send us a textThis week Alicia was joined by guest host and former guest, Hannah Cramer and they interviewed Alicia Aiello! Alicia A. is the President of Girls With Guts which is a nonprofit organization supporting and empowering women living with IBD and with ostomies. We talked to her all about her IBD journey and how that lead her to Girls With Guts. We discussed how her background in videography and visual arts helped her to bring some awareness to their work and how she eventually transitioned to become their President. We discussed some of their work including their "Butt Baskets" and their Lover Your Guts program and we spent a lot of time talking about their retreats. They host 2 retreats per year including a New Attendee or "Newbie" Retreat as well as an annual retreat that brings in come of those first-timers as well as alumnae. We really enjoyed our conversation with Alicia and are so impressed with the work of GWG and Hannah was an amazing co-host! Please keep in mind that the views and opinions expressed in this program are those of the speakers and should not be considered medical or legal advice. Please consult with your healthcare team on any changes to your disease, diet, or treatment. We want you to stay safe and healthy! ;)Links: Girls With Guts websiteInfo about the GWG retreatsThe presentation that Alicia gave to her classAlicia's personal website with more videosHannah's episodeHannah and Robin's episode about EMDRLet's get social!!Follow us on Instagram!Follow us on Facebook!Follow us on Twitter!
Please Subscribe and Review: Apple Podcasts | RSS Submit your questions for the podcast here News Topic: Decouple Podcast: The Bottomless Well Show Notes: The Bottomless Well - Book by Peter Huber and Mark Mills Rescue The Republic Covid Critical Care Alliance Questions: Pain Relief for Rotator Cuff Injury Kat writes: Hello from Canada. Love your podcast. I've just found out Iikely have an injury/tear as mentioned above and am pending diagnostic tests. In the meantime, I've been prescribed Baclofen (Muscle relaxant) and an NSAID. Both are making me very ill to the point where I've pretty much stopped taking the meds as Baclofen is causing me to be very unstable on my legs, horribly nauseated, physically ill and feeling very groggy/sedated/intoxicated. The NSAID...I noticed lastnight I had some blood drip during an Ileostomy appliance change. I'm aware of the bowel bleed risks to myself with Crohn's and an ostomy, but after a bleed, more. As a result of choosing not to take these meds anymore, I am in excruciating agony and nothing is providing relief...hot baths, cold packs, hot packs. I cannot sleep for the agony. Every single movement/action excruciating to the point of wanting to scream. Is there a safer, easy remedy for the pain that I can try without requiring much use of my arm? Any suggestions are appreciated. Air Hunger and Keto Joe writes: Hello Robb and Nikki. I have a couple of questions: I have been chronically experiencing "air hunger" (feeling of inability to get a deep enough breath, rather than a shortness of breath) when following a ketogenic diet. Being insulin resistant, it is critical that I find a solution. My doctor pointed me to ph balance but offered no real solutions. I've since begun drinking alkaline water almost exclusively and it seems to have helped some, though not completely. I don't think this is just in my head, though my research yields a correlation with anxiety, which I do not have. Is this real thing or am I imagining things just because of my carb addiction? If it is real, any ideas how to combat it? Next question is about LMNT. Though I've been a user for quite a while, I tend have a rather explosive intestinal response soon after ingesting it. I've tried cutting back, which is fine when not following a ketogenic diet, but when on diet I really need it. Thoughts? Thanks! Previous Myocarditis and MRNA shot Marc writes: Hi Robb and Nikki, Long time listener, and reader from the beginning here. Really appreciate all that you do as I have made vast improvements in my life which all started with the paleo solution over a decade ago. I am a healthy, active 37 year old male, living in Brooklyn NY. I cycle 4-5 days a week, lift weights 3-5 days, play ice hockey and get plenty of sun! I eat a carnivorish, paleo type diet, with a strict aversion to gluten. Sleep is pretty dialed in, though I do enjoy alcohol one or two nights a week, but am also very aware of how it effects me etc. When I was 20 years old I ended up hospitalized for over a week with myocarditis. I had strep throat, which was all the norm for me, as I used to get it once or twice a season until my mid 20's. The infection had actually gone down into my heart and which had caused the issue. It was a terrifying experience as they thought at first I was having a heart attack. After things went back to normal and I was discharged, the cardiologist told me to take a baby asprin every day, prescribed me nitroglycerin incase I had chest pain, and told me to "maybe try meatless Mondays, as heart disease runs in the family." I was far from thrilled with the "solutions" I was given. Long story short, it was after this that I started my health journey which eventually led me to you and the Paleo Diet. Within a month I was down 20 lbs, feeling great, and fast forward over 15 years later I never had another strep infection! Cutting to the chase, when covid struck, I went and got the first 2 jabs of pfizer, back in early 2021 living here in NYC I wouldn't have been able to participate in life, and they dangled the carrot in front our noses, promising freedom once the shot was taken. I had not heard anything about the dangers of myocarditis being a side effect at that point, and Needless to say I was infuriated once the side effects were made known. Its been about 3.5 years since getting my second shot, but seeing all of these healthy young people drop dead has been pretty frightening. There is also no way to "google" this stuff and get answers, we all depend on brave people like RFK Jr, and Brett Weinstein to stand up and inform us. I was wondering if you had any advice on anything I can continue to do, and/or if you think I should even be concerned at this point. I know there's probably alot to unpack here, but any advice, or information that you have would be greatly appreciated. Thanks again for everything, and wish you all the best! -Marc Sponsor: The Healthy Rebellion Radio is sponsored by our electrolyte company, LMNT. Proper hydration is more than just drinking water. You need electrolytes too! Check out The Healthy Rebellion Radio sponsor LMNT for grab-and-go electrolyte drink mix packets and the new LMNT Sparkling electrolyte performance beverage! Click here to get your LMNT electrolytes Transcript: Coming soon! .
Andrea Donsky, nutritionist, Menopause Researcher, Menopause Educator, and co-founder of Morphus, is joined by Lorene Sauro for this important interview. Lorene is a Registered Holistic Nutritionist who has struggled with endometriosis, arthritis, and a recent cancer diagnosis.Show topics:- Ovarian Cancer Symptoms: Why You Shouldn't Ignore Them- Can Holistic Nutrition Prevent Ovarian Cancer Metastasis?- The Importance of Annual Vaginal Ultrasound for Ovarian Cancer Screening- What is an Ileostomy and How Does it Affect Gut Health?- Navigating Healthcare for Ovarian Cancer: Overcoming Silos- Post-Surgery Diet: What to Eat After Major Abdominal Operations- Walking for Faster Recovery After Ovarian Cancer Surgery- Hysterectomy Recovery Diet: Nutrient-Dense Whole Foods- Adrenal Health After Ovarian Cancer: Dietary TipsKeep Me Home Longer An optimistic podcast about home care. Growing options for managing conditions in...Listen on: Apple Podcasts Spotify======Shop Morphus Supplements: https://bit.ly/3R1bd3D
In this episode, host LeeAnne Hayden interviews Raina about her journey with an ostomy and her book 'Bare'. Raina shares her experiences with ulcerative colitis, her decision to get an ileostomy, and her subsequent journey with a J-pouch. She discusses the role of social media in her life and how it has helped her connect with others. Raina also talks about the challenges of dating with an ostomy and the importance of being open and honest about her condition. In this part of the conversation, LeeAnne Hayden discusses her experiences with relationships after getting an ileostomy. She shares how her first relationship after the surgery helped her feel loved and accepted with her bag. She also talks about the challenges of dating and having to disclose her condition to potential partners. LeeAnne emphasizes the importance of self-love and acceptance in navigating relationships with an ostomy. She also discusses her transition from being a wellness coach to a life coach and the power of journaling in her healing journey. Takeaways Raina's journey with ulcerative colitis led her to get an ileostomy and later a J-pouch. Social media has played a significant role in Raina's life, allowing her to connect with others and share her experiences. Dating with an ostomy can be challenging, but being open and honest about it is important. Raina's book 'Bare' is a candid and honest account of her journey with an ostomy. Having a supportive partner can help in feeling loved and accepted with an ostomy. Self-love and acceptance are crucial in navigating relationships with an ostomy. Disclosing one's condition to potential partners can be nerve-wracking, but it is important for open communication. Transitioning from a wellness coach to a life coach allowed LeeAnne to focus on deeper aspects of personal growth and mindset. Journaling can be a powerful tool for self-reflection, healing, and manifestation. "I think my soul knew I needed that community and needed to have that as this like, you know, just this voice to like keep going, even when I didn't want to sometimes." LeeAnne emphasizes that listeners should read this book, which you can find HERE Connect with Raina on Instagram Connect with LeeAnne on Instagram
In this episode, I, LeeAnne Hayden, emphasize the crucial role of nutrition in maintaining overall health and well-being. I stress the importance of consuming a balanced diet rich in nutrients, including whole grains, fruits, vegetables, lean meats, and healthy fats. Throughout the discussion, I recognize that individual preferences and tolerances vary, urging listeners to experiment and find what works best for their bodies. Supplementation is highlighted as a means to address potential nutrient deficiencies, particularly in light of changes in food quality and soil. I recommend high-quality supplements while advising listeners to consult healthcare providers before starting any supplementation regimen. Furthermore, I stress the significance of managing fluid intake, emphasizing hydration and the addition of electrolytes to water for optimal hydration. Listeners are encouraged to visit my website LeeAnneHayden.com for more information and resources on wellness. I also provide strategies for dining out, including reading menus carefully, asking about ingredients, and making adjustments to meals when necessary. Drawing from personal experiences, such as challenges after surgery, I underscore the importance of seeking expert advice from healthcare professionals, nutritionists, dieticians, and WOCN nurses. Finally, I invite listeners to connect with me on Instagram @instagram, YouTube LeeAnneHayden, and through my website LeeAnneHayden.com. Additionally, I offer a free wellness guide on my website for those interested in further resources.
Title: Embracing Self-Love: Body Positivity and Self-Esteem Description: Join host LeeAnne Hayden in this powerful episode of the Beautiful Bag podcast as she delves into the crucial topics of body positivity and self-esteem. With a compassionate heart and insightful perspective, LeeAnne guides listeners through practical steps to cultivate self-love and acceptance, especially in the face of challenges like living with a stoma. In this episode, LeeAnne reflects on her own journey and shares personal experiences, offering relatable insights for listeners. From making the decision to love oneself to setting small achievable goals and practicing positive self-talk, she provides actionable strategies to uplift and empower individuals to embrace their unique beauty and worth. Discover the importance of surrounding oneself with positive role models and fostering a supportive community for mutual encouragement and growth. LeeAnne's heartfelt message reminds us all that we are loved, valued, and deserving of self-compassion. Tune in to this episode for inspiration, encouragement, and practical tips on how to nurture self-love and celebrate the beauty within. Show Notes: Introduction: Host: LeeAnne Hayden Theme: Body Positivity and Self-Esteem Dedicated to spreading love and empowerment Body Positivity: Importance of self-love and acceptance Overcoming societal norms and comparisons Making the decision to love oneself unconditionally Self-Esteem Building: Setting small achievable goals Practicing positive self-talk and affirmations Dressing in a way that makes you feel confident Finding supportive role models and communities Community Engagement: Invitation to join the Beautiful Bag community on Telegram Sharing the podcast episode to spread love and encouragement Conclusion: Reaffirmation of self-worth and beauty Gratitude for listeners and commitment to making a positive impact Listeners are encouraged to share their thoughts, experiences, and insights in the comments section and to join the Beautiful Bag community for ongoing support and encouragement. Together, let's embrace self-love and celebrate the beauty within each of us. Connect with LeeAnne Hayden: Instagram: @beautifulbagpodcast Instagram: @leeannehayden TikTok: @beautifulbagpodcast TikTok @leeannehayden1 YouTube: LeeAnne Hayden Join the Beautiful Bag Community on Telegram: [Link] Don't forget to subscribe and leave a review if you found this episode inspiring and helpful!
In This Episode: Celebrating 4 Years: Reflecting on the journey of 'The Beautiful Bag Podcast' now entering its fourth year. Gratitude: A heartfelt thank you to listeners for tuning in weekly and sharing in the stories of resilience and inspiration. Surviving and Thriving: Emphasizing the importance of resilience and thriving despite life's obstacles. Building Community: Plans to create an online presence for listeners of the podcast. Personal Milestones: Celebrating LeeAnne's eighth anniversary of surviving cancer and having her stoma. Reflecting on Change: How LeeAnne's life transformed post-cancer, including her career shift and embracing new challenges. The Power of Self-Appreciation: Discussing the importance of loving and appreciating your body, especially after major health changes. Journaling and Meditation: Tips on how to use journaling and meditation to cope with life's challenges and improve mental health. Embracing Wellness: Encouraging listeners to embrace their bodies and wellness, with specific strategies and affirmations. Upcoming Speaking Engagement: LeeAnne shares her upcoming visit to Hollister's manufacturing plant in Virginia. Connect with LeeAnne: Website: LeeAnneHayden.com Instagram: @leeannehayden TikTok: @leeannehayden1 Facebook: @leeannehayden07 Free Resources: Confidence Building Affirmations for Ostomates: Sign up and download affirmations designed for ostomates. Embracing Wellness Guide: A guide to help start the new year with wellness-focused practices. Next Episode Preview: Stay tuned for more inspiring stories and empowering discussions in our next episode. Remember to subscribe, share, and leave a review for 'The Beautiful Bag Podcast'!
Click here to view the Wound, Ostomy, and Continence Nurses Society Core Curriculum: Ostomy Management Core, 2nd EditionClick here to view handout on how to treat ileostomy blockage from the United Ostomy Associations of America (UOAA)Click here to view all the WOCN-accredited WOC Nursing Education Programs (WOCNEPs) About the Speaker:JoAnn is a CWOCN since 1989 and FNP since 1999. She currently is President, Co-Director, and faculty for WEB WOC® Programs in Minneapolis, MN since 2002, educating nurses who are interested in becoming wound, ostomy, and continence care nurse specialists. In addition, JoAnn practices parttime at MercyOne North Iowa Continence clinic and Wound/Vascular Center in Mason City, IA.She is co-author of a chapter in the 2nd Edition of WOCN Core Curriculum: Wound Management, 2022, which discusses wound bed preparation using the expanded TIME framework and other general principles of topical therapy.
Intro (00:06-00:19): LeeAnne warmly welcomes the audience to "The Beautiful Bag Podcast." The special guest, Allison, is introduced, and the host shares their exciting meeting at the UOAA annual convention. Reflecting on the thrill of meeting individuals in person after connecting with them on social media. Introduction to Allison's Story (00:19-01:55): Allison's background in working at the American Cancer Society and her journey with colorectal cancer. Being diagnosed with Crohn's disease at the age of 12 and experiencing remission for several years. The sudden onset of unusual symptoms leading to a diagnosis of colorectal cancer. Emphasis on the importance of regular check-ups and colonoscopies. Describing the shock and challenges of facing a cancer diagnosis and the need for prompt medical attention. The Journey Begins (01:55-02:33): Allison's life before cancer and her work in cancer research in Houston, Texas. Receiving a clean bill of health during a previous colonoscopy. The gradual onset of concerning symptoms leading up to the cancer diagnosis. Symptoms and Diagnosis (02:33-05:46): Allison's experience with changing bowel habits, weight loss, fatigue, and abdominal pain. The discovery of a blockage and initial uncertainty about the diagnosis. The shocking moment when Allison was diagnosed with colorectal cancer. Seeking multiple surgical opinions and ultimately choosing MD Anderson for treatment. The importance of personalized care and finding the right medical team. Quality of Life with an Ostomy (05:46-07:53): Discussion about the misconceptions and fears surrounding ostomies. Allison's initial hesitation and her decision to opt for a J-pouch after surgery. Reflecting on how she would make different choices if she knew then what she knows now. The importance of education and dispelling myths about life with an ostomy. Overcoming Preconceived Notions (07:53-10:50): Addressing common questions people have about living with an ostomy, including eating normal food, wearing regular clothes, and concerns about relationships. Alison's personal experiences with dating and relationships after having an ostomy. The role of the ostomy community in providing support, sharing stories, and breaking stigmas. The positive response to Allison's social media posts about her ostomy. Embracing and Naming the Ostomy (10:50-13:18): Discussing the significance of naming the ostomy, with Allison sharing the name "Phil." Allison's experience of wearing a bikini for the first time and embracing her scars and ostomy. The power of community and connecting with like-minded individuals who understand. The growth and support Allison received through social media. Advocacy and Community Engagement (13:18-15:47): Allison's advocacy work, including volunteering with cancer support programs and ostomy associations. The importance of mentoring and supporting individuals considering or living with an ostomy. The impact of sharing personal stories and experiences to help others. Encouraging people to live life to the fullest and not let fear of an ostomy hold them back. The Top Three Questions (15:47-End): The most common questions Allison receives about ostomies: eating normal food, wearing regular clothes, and concerns about relationships. The role of education and dispelling misconceptions about life with an ostomy. The importance of living life fully and not letting an ostomy prevent someone from enjoying life. Podcast Outro: The host expresses gratitude to Allison for sharing her inspiring story and valuable insights. Encourages listeners to connect with Allison on social media and stay tuned for more episodes of "The Beautiful Bag Podcast." Resource Links: Allison's TikTok Allison's Instagram Closing Message from Allison: "An ostomy is not the end of your life; it is just the beginning of your life."
In this episode, Bryan talks to Anna Ransbotham-Cole about her journey of getting an ileostomy surgery after living with ulcerative colitis. Anna shares the depths that she reached when ulcerative colitis was at its worst, and how she says her ileostomy surgery gave her her life back. She shares more about what an ileostomy surgery is, what this journey has taught her about life, and much more. Resources that Anna recommends: - United Ostomy Associations of America - Crohn's & Colitis Foundation - Follow @betterbelliesbymolly on Instagram As always, take what serves you - and leave the rest. (This podcast is not meant to replace therapy. If you feel you need it, we encourage you to reach out to a licensed mental health professional)
Does this sound familiar? You've been told to simply get used to it and accept the challenges that come with living with an ileostomy. But let's be honest, it's not that simple, is it? The pain and frustration of trying to adapt to a new way of life while facing physical and emotional hurdles can feel overwhelming. And yet, despite your efforts, you're still struggling to find the support and guidance you need. It's time for a different approach. Join us in this episode as we uncover the complexities of living with an ileostomy and empower you to overcome the challenges with resilience and confidence."I tend not to think about things I'm out of my control, such as medical issues. What I can control is my positive attitude." - Dan ShockleyIn this episode, you will be able to:Uncover the complexities of hereditary colon cancer syndrome and the significance of genetic testing.Realize the vital role of regular screenings in the early detection of potential health hazards.Journey through the challenging path of adapting to life with an ileostomy.Participate in a mission to de-stigmatize ostomies and amplify the call for universal awareness.Explore the need for healthcare reform emphasizing preventive screenings.My special guest is Dan ShockleyMeet Dan Shockley, a man of resilience with an ability to adapt and overcome in the face of adversity. A retired Navy veteran, Dan has served in Operation Desert Storm and is an Iraqi Freedom Veteran, priding himself on the mental toughness earned from his military career. A little-known fact about our special guest, Dan has been diagnosed with an attenuated form of Familial Adenomatous Polyposis (FAP), a rare hereditary condition impacting less than 0.3% of the global population. With his trademark positivity, Dan navigated his complicated medical journey to live a full life post an unexpected ileostomy surgery.
Pouch expert Dr Laura Raffals joins Dr Sunanda Kane to deep-dive into patient care after J-pouch surgery. Topics include pouchitis, Crohn's of the pouch, pelvic floor dysfunction, and pregnancy. Relevant disclosures can be found with the episode show notes on Medscape (https://www.medscape.com/viewarticle/984009). The topics and discussions are planned, produced, and reviewed independently of advertisers. This podcast is intended only for US healthcare professionals. Resources Ulcerative Colitis https://emedicine.medscape.com/article/183084-overview Ileal Pouch-anal Anastomosis https://emedicine.medscape.com/article/1892231-overview Northwestern Medicine Feinberg School of Medicine Faculty Profiles https://www.feinberg.northwestern.edu/faculty-profiles/az/profile.html?xid=29442 Microbiome Analysis of Mucosal Ileoanal Pouch in Ulcerative Colitis Patients Revealed Impairment of the Pouches Immunometabolites https://pubmed.ncbi.nlm.nih.gov/34831464/ University of Chicago, Biological Sciences Division Faculty https://biologicalsciences.uchicago.edu/faculty/eugene-b-chang-md Mayo Clinic Department of Gastroenterology and Hepatology Biographies https://www.mayoclinic.org/biographies/camilleri-michael-m-d/bio-20054405 Crohn Disease https://emedicine.medscape.com/article/172940-overview Complications Related to J-pouch Surgery https://pubmed.ncbi.nlm.nih.gov/30846911/ A Systematic Review: The Management and Outcomes of Ileal Pouch Strictures https://pubmed.ncbi.nlm.nih.gov/29155985/ Pre-pouch Ileitis Is Associated With Development of Crohn's Disease-like Complications and Pouch Failure https://pubmed.ncbi.nlm.nih.gov/33300546/ Primary Sclerosing Cholangitis https://emedicine.medscape.com/article/187724-overview Pathologic Features and Clinical Significance of "Backwash" Ileitis in Ulcerative Colitis https://pubmed.ncbi.nlm.nih.gov/16224214/ Efficacy and Safety of Biologics and Small Molecule Drugs for Patients With Moderate-to-severe Ulcerative Colitis: A Systematic Review and Network Meta-Analysis https://pubmed.ncbi.nlm.nih.gov/34856198/ Anastomotic Leak After Ileal Pouch-Anal Anastomosis https://pubmed.ncbi.nlm.nih.gov/34853564/ Inflammatory Bowel Disease https://emedicine.medscape.com/article/179037-overview Ileostomy https://pubmed.ncbi.nlm.nih.gov/30085545/ Pelvic Floor Dysfunction https://pubmed.ncbi.nlm.nih.gov/32644672/ The London Classification: Improving Characterization and Classification of Anorectal Function With Anorectal Manometry https://pubmed.ncbi.nlm.nih.gov/32935278/ Defining Normal Pouch Function in Patients With Ileal Pouch-Anal Anastomosis: A Pilot Study https://pubmed.ncbi.nlm.nih.gov/35274320/ MR Defecography Review https://pubmed.ncbi.nlm.nih.gov/31544226/ Pouch Function and Gastrointestinal Complications During Pregnancy After Ileal Pouch-anal Anastomosis https://pubmed.ncbi.nlm.nih.gov/20608799/
What's up, friends? We're back to our routine. This week on the podcast, I welcome James Humberstone. James is in the early stages of his jiu-jitsu journey as he trains out of @wammabdn and has an ileostomy. He shares the story of how the ileostomy came about for him, being turned down by a gym due to his condition (for safety reasons), and where he is on his journey. You can follow James and his adventures on Instagram at @jnchumberstone Also, go give a follow to @the_goosewithout_guts. He's also shares in common without James and myself that he trains jiu jitsu and has an ostomy and I'll be sitting with him soon to bring his story to you all, as well. Thank you all for listening to and supporting the podcast. Below, you'll find info on where to find the shows and social media. Go give a follow and listen to @so_you_like_horror on Instagram and listen to the new episode on Spotify https://spoti.fi/3Jqrrxj Show is available on MANY PLATFORMS FOLLOW US ON SOCIAL MEDIA Facebook.com/offthematspodcast Instagram @offthematspodcast Twitter @offthematspod1 TikTok https://bit.ly/3FTEZAd WRITE INTO THE SHOW Email: offthemats2020@gmail.com Merchandise Can Be Found At https://www.bjjwiki.net/
Episode Resources:The WOCN® Society Community platform provides an online support network for questions, inquiries, and professional networking – Join the Continence Community to view discussions, post, and reply to othersThe Community platform is a WOCN members-only benefit. You must be logged in with your WOCN membership username and password to view access the online discussions.Click here to view and download the poster “The WOC Nurse Role in Post-Operative K-Pouch Care” created and presented by Erin and VanessaClick here to visit the Quality of Life Association websiteClick here to visit the K-Pouch Korner online forum provided by The J-Pouch GroupClick here to view and download the United Ostomy Associations of America (UOAA) Ostomate Bill of Rights resources pageClick here to visit the Patient Resources section of the WOCN Society's websiteClick here to purchase the Core Curriculum Ostomy Management, 2nd Edition About the Speakers:Vanessa Marra, BSN, RN, CWOCN, has 10 years of nursing experience and has held a WOC Nurse certification for 5 years. Vanessa has expertise with Continent Ileostomy Patient care.Erin Testerman-Mitra, BSN, RN, CWOCN has 13 years of nursing experience and has held a WOC Nurse certification for 10 years. Erin has expertise with continent ileostomy patient care. Erin served as Secretary, Vice President, and President of the WOCN® Society's Metro NY Affiliate, and currently sits on the Society's national Membership Engagement Committee.
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In this week's episode I discuss tips and tricks for swimming with an Ostomy. Finding confidence to do it Personal story on my first time in the pool What to wear How to make sure everything is on correctly How to avoid leaks The benefits of swimming www.steathbelt.com Follow LeeAnne on Instagram @leeannehayden , on Facebook @leeannehayden07 or on her website leeannehayden.com
Welcome back to our weekend Cabral HouseCall shows! This is where we answer our community's wellness, weight loss, and anti-aging questions to help people get back on track! Check out today's questions: Ryan: First off, thanks again for all that you do in providing great content, services and products to our community. I have a question in terms of tinctures. I am currently growing shiitake and lion's mane mushrooms on logs in my yard along with harvesting wild oyster and turkey tail mushrooms. After eating ample mushrooms I will have a lot extra and am thinking of making a dual extract tincture with all 4 mushroom types to take advantage of the medicinal properties. My question is if you end up with a 30% alcohol tincture and take a dropper per day does the alcohol consumed counteract the benefits of the mushrooms? Can kids consume tinctures? Thanks again. Alicja: Dear Dr. Cabral, Could you please explain the difference between Adrenal Soothe and Adrenal Energy Support (EquiLife supplements) Which circumstances would a be better fit for adrenal soothe and when adrenal energy support is better. Thank you so much. Keith: Dr. Cabral, I'm 61 years old, I've lived with Crohn's since my early teens and despite numerous doctors, psychiatrists, tests my disease went undiagnosed. I suffered through many episodes of depression, apathy, anxiety and general malaise. At 46 my disease flared and I was misdiagnosed with Ulcerative Colitis, being treated for UC for 3.5 years with multiple flare-ups, hospitalizations, prednisone cycles, etc. After a severe flare-up I ended up in the Emergency Room at the University of Chicago, by God's grace Dr. David Rubin was on call and took over my case. Two days later after multiple tests, I was told my colon was ready to rupture in 4 spots(1in each segment), 5 days later surgery to remove 98% of my large intestine. 6 months later after a sigmoidscopy, I endured a 10.5 hr. surgery due to the significant scar tissue and inflammation. I live with a permanent Ileostomy. I've been on an 11 year journey to understand and develop a lifestyle to adapt to this handicap and have yet to be exposed to a comprehensive article, podcast, etc to better understand this condition. Your podcasts have enlightened me on so many subjects and would ask if you might able to address this on one of your podcasts? Sincerely Keith Ryan: Thanks again for all that you do and hope you are having a great day. For my question, once you take the time and put in the effort to get your gut rebalanced how sensitive is it to becoming imbalanced and what can you do to help maintain? More specifically, on a week long vacation I can have a few alcoholic drinks daily, would this or could this mess things up? Is there anything that can be done during the vacation to help reduce the risk? Daily foundational protocol, healthy gut support, probiotics, immune support…? Have you heard of ZBiotics? It is a pre-alcohol probiotic that breaks down acetaldehyde, would this help? Once again I know the best answer is to abstain from daily alcoholic drinks but just wondering how to reduce the potential damage. Thanks again. Kevin: Hi, I have recently been diagnosed with sarcoidosis. Are there protocols or perhaps labs whose result(s) would provide a path beyond medications?...or is conventional medicine my only option? Thanks, Kevin Katherine: I had a thyroid storm in 1984, and my thyroid was radiated. I have been on Synthroid for 38 years. i was diagnosed with Graves in 1984. I am 60 years old. 5'3 135 pounds. I have struggled with my weight for all of these years. How do I stoke my metabolism without a T-3 or T-4 gland? Thank you for tuning into today's Cabral HouseCall and be sure to check back tomorrow where we answer more of our community's questions! - - - Show Notes and Resources: StephenCabral.com/2430 - - - Get a FREE Copy of Dr. Cabral's Book: The Rain Barrel Effect - - - Join the Community & Get Your Questions Answered: CabralSupportGroup.com - - - Dr. Cabral's Most Popular At-Home Lab Tests: > Complete Minerals & Metals Test (Test for mineral imbalances & heavy metal toxicity) - - - > Complete Candida, Metabolic & Vitamins Test (Test for 75 biomarkers including yeast & bacterial gut overgrowth, as well as vitamin levels) - - - > Complete Stress, Mood & Metabolism Test (Discover your complete thyroid, adrenal, hormone, vitamin D & insulin levels) - - - > Complete Food Sensitivity Test (Find out your hidden food sensitivities) - - - > Complete Omega-3 & Inflammation Test (Discover your levels of inflammation related to your omega-6 to omega-3 levels) - - - Get Your Question Answered On An Upcoming HouseCall: StephenCabral.com/askcabral - - - Would You Take 30 Seconds To Rate & Review The Cabral Concept? The best way to help me spread our mission of true natural health is to pass on the good word, and I read and appreciate every review!
In this week's episode, I speak with Brock Masters. Brock was born with Spina Bifida and has overcome so much. We talk about: - How perception is reality - Fitness - Mindset - Getting his freedom - Volunteering - Being part of a community and so much more! US Youth Camp - https://youthrally.org Canadian Youth Camp - https://www.ostomycanada.ca/ostomy-canada-youth-camp/ Find Brock on Instagram @brocknessmonsterr or email him at Brock.Masters@hollister.com Follow LeeAnne on Instagram @leeannehayden or on her website www.leeannehayden.com
In this week's episode, I speak with Oliver also known as The Kid with a Bag on Instagram. We discuss: - Being diagnosed with Ulcerative Colitis as a teenager - Having a permanent Ileostomy in June 2020 - Playing sports with an Ostomy - Positively using social media to raise awareness for chronic and invisible illnesses
This special podcast is part of the Ostomy Observations Series, a brand-new 6-part series that is included in the "Educating Today for Exceptional Outcomes Tomorrow" Program and is commercially supported through an educational grant from Hollister Incorporated.On this month's episode we sit down with Parul Kharod, MS, RD, LDN, to discuss various cultural dietary practices and dietary information for patients with an ileostomy.Parul is a registered dietician and licensed nutritionist working as a clinical dietician in outpatient nutrition services at WakeMed Hospital in Raleigh, NC. She specializes in autoimmune diseases, GI issues and intolerances, diabetes, and kidney diseases. She has lived in India, Africa, France, and various states in the US, which has given her a unique perspective on cultural food habits and nutrition.This podcast is part of the OstomyObservations Podcast Series, a brand-new 6-part series that is included in the "Educating Today for Exceptional Outcomes Tomorrow" Program. Both the podcast series and the Educating Today for Exceptional Outcomes Tomorrow Program are commercially supported through an educational grant from Hollister Incorporated. For additional information, please visit: wocn.org/exceptionaloutcomes. The WOCN® Society does not endorse or support products or services.Episode Resources:United Ostomy Associations Of America, Inc. (UOAA) Comprehensive Nutrition Guide for Those Living with an Ostomy: https://www.ostomy.org/diet-nutrition/American Gastroenterological Association GI Patient Center:https://patient.gastro.org/?_ga=2.156866872.201141057.1659488171-1183126098.1638929146Research-based Vegetarian Diet Resources by Registered Dietitians:https://www.vndpg.org/resources/vegetarian-dietitian-resourcesAmerican College of Lifestyle Medicine: https://lifestylemedicine.org/patient/
In this week's episode I bring back Dr. Joga Ivatury. We discuss: - the differences between an Ileostomy vs a Colostomy - Ulcerative Colitis & Crohns - When to seek medical help - Listening to your body - How to connect with stoma nurses - Keeping your gut healthy
In this week's episode, I speak with guest Lewis Schassler. Lewis was diagnosed with UC in 1985 and chose to have a J-pouch instead of an ostomy. For over 20 years he knew something wasn't right and kept going to the doctors. They continued to tell him that everything looked good until he finally found a doctor that listened. 20+ years later they find out the J-pouch had been leaking all along. Listen in to hear his story! Also listen in to learn how he took this knew life and created a business. His website is ostotees.com
A story about a small town girl that had no where to turn. She found strength and hope as God began to show up in small powerful ways As you all know, I have been doing everything within my power to bring awareness to Crohn's Disease, Ulcerated Colitis, Auto-Immune Disorders, Ileostomy, Colostomy, & Urostomy bags, Colon cancer etc. I have been so inspired by all my guest that have been on my podcast. You are going to be inspired by Brandi also as we bring awareness of the suffering that some people go through. Brandi was diagnosed with UC at the age of 18 in Feb of 2006 as a high school senior. Right when she thought she would get better, things just got worse and darker for her. Following many surgeries she was also diagnosed with Crohn's as her body decided to attack the Jpouch. Brandi has suffered greatly, but God always provided a person that could help direct her right when she needed it. Throughout Brandi's sufferings, Philippians 4 has really ministered to her and has always given her strength. Like verses 4 & 5 says, " Be full of joy always because you belong to the Lord. Again I say, be full of joy! Let all people see how gentle you are, for the Lord is coming soon”. Again…. Verses 6& 7 says, “Do not worry. Learn to pray about everything. Give thanks to God as you ask Him for what you need. The peace of God is much greater than the human mind can understand. This peace will keep your hearts and minds through Christ Jesus.” Then it goes on to say, “ thing on these things…..good reports! “ Brandi's life verse is that she has learned to be happy with whatever she has. She strives to be content in need and want. She has learned the secret of being happy at all times…….Through Jesus Christ! Philippians 4:13 I can do all things because Christ gives me the strength.
In this week's episode, I speak with Holistic Health Coach Cody Maher about having multiple surgeries to have a JPouch instead of an ostomy. We talk about the journey from living life as an athlete, to performing in the circus to the struggles she went through and ending up with a J Pouch. From her journey, Cody has now changed careers to be a holistic health coach to help others who are learning about their bodies and more importantly how to work through the trauma.
Ana tells her story of childhood disease of Crohn's and how she is dealing with the challenges it brings. If you've been following my journey with my son Rhett Swanson, then you know I am bringing awareness to IBD, Crohn's, Ulcerated Colitis, Colon Cancer, Ileostomy bags, and childhood disease. Today you will hear about Ana's story of survival and how she got through it all. Ana is 28 years old and started to get sick at 14, but not officially diagnosed until 15. She graduated from high school even though she was sick in 2012 and went to college for nursing. She joined the BCM at her first college and went through a lot of sickness in school. Eventually she had to move back closer to home and went to Ga State University at Perimeter college. She got a degree finally in 2018. Still all while going through illness physically, mentally and emotionally. She sadly never made it to nursing school, but she was able to go on many mission trips. Ana is still going through so much with Crohn's disease including having to have a month long stay in January 2022. That was the longest hospital stay that ended in two surgeries. One ended in one of her worse nightmares of having to get a temporary Ostomy bag. Things were really rough for a while, but slowly got better! Due to Covid and not being able to work she decided to open her own business of painting! Then this May 2022, she published her first book! Her powerful story of trials and triumphs is still going and she is getting stronger each day. She stands upon Phil. 4:13 I can do ALL THINGS through Jesus Christ who gives me strength. You are going to be so inspired by her story.
Melinda talks about the thing that she had feared happened to her like in Job's case in the Bible. For her it was Colon Cancer, Death of husband, Chemo, Partial colectomy with Colostomy bag, and second diagnoses of cancer. Job 3:24-26 24 I sigh when food is put before me, and my groans pour out like water. 25 For the thing I feared has overtaken me, and what I dreaded has befallen me. 26 I am not at ease or quiet; I have no rest, for trouble has come.”… Today you will hear Melinda's Story. This whole month I am bringing recognition to Ileostomy & Colostomy bags, IBD, Crohn's, Ulcerated Colitis, Colon Cancer and Childhood Disease. If you have been following me, you know what my son Rhett has gone through the past few months with his colectomy and Ileostomy bag. I have seen the silent killer of hopes, dreams, growth and so much more try to steal my son's breath right before my eyes. There is nothing worse than seeing someone you love in so much pain, and there is nothing you can do about it but grieve the loss, cry and try to move forward. I want you to hear Melinda's story and grasp a hold of how HOPE captured her during the darkest times of her life. When the thing she feared knocked on her door. It's the Word of God that we cling to in hard times. We have a hope and a promise and we have to cling to it! We have to BELIEVE! David said this: Psalm 27:13-14 New King James Version 13 I would have lost heart, unless I had believed That I would see the goodness of the Lord In the land of the living. 14 Wait on the Lord; Be of good courage, And He shall strengthen your heart; Wait, I say, on the Lord! There is an expiration to this trial. This pain did not come to stay, but it will pass for the Word of God says: Psalm 30:5 …….Weeping may endure for a night, But joy comes in the morning……. Melinda survived the death of her husband in the middle of Chemotherapy treatments. She had surgery to remove a portion of her colon just to wake up to another nightmare of having a bag. A surgery that was only supposed to take 3 hours, took 9 long hours. Melinda is so very inspiring! She survived the death of her husband, and stage 4 colon cancer. She went from cancer to funeral, from funeral to a colostomy bag, from a bag to chemo, from chemo to broken bones, from broken bones to another devastating diagnoses to tumors in her lungs and now more chemo. HOW DOES A PERSON MAKE IT THROUGH THIS? Listen to this full episode and find out! You will hear the raw story of how Melinda walked through the valley of the shadow of death. You will hear about her dark times, her good times, and how God used people to help her. I pray you will be touched by this incredible story!
Dana talks about her diagnoses of Pancreatic insufficiency at the age of 5 years old and how she beat the odds of what the doctors said. For the next few weeks I am bringing recognition to those who have suffered and overcame childhood disease such as Crohn's, Ulcerated Colitis, Colon Cancer, Ileostomy bags, Pancreatic disease etc. You are going to be so touched by Dana's story! Dana Whitfield Buchli is 35 years old and lives in Statesboro, Georgia and is married to Sam Buchli. She was born with chronic pancreatic disease and was eventually diagnosed with pancreatic insufficiency at the age of five. She often refers to herself as “that sick girl” when she was growing up and in college, given she missed a lot of school and was constantly at the doctor or in hospitals. At 19 years of age, she began to have idiopathic acute pancreatitis which eventually evolved into chronic pancreatitis. There were several years she spent more days in the hospital, than out of the hospital. 11 years ago she had a total pancreatectomy and islet cell transplant surgery in an attempt to ease physical pain and long stays in hospitals. Unfortunately, she had many complications and things did not go as planned for the next 10 years. In the years after the original surgery she had countless surgeries including surgeries to remove recurring ulcers, bowel obstruction surgeries, and a total colectomy. In this process she endured 3 ileostomies and reversals, organ failure, near death experiences, all the while also being hospitalized for COVID, and type 1 diabetes. During this time, she also discovered that she will not be able to have children due to the many medical issues and complications involved. This was a different kind of devastation and grief and she is still trying to deal with this news. All the while, she was also in college and graduate school trying to fit in and live a fulfilled life. Recently, she met her goal and graduated with her master's degree. September 2022 will be one year without surgery or a major complication, which is a huge win. She still has to deal with many struggles every day just to live a “normal” life and to also deal with the many medical issues that will forever be in the picture. You will be so inspired and touched by Sam and Dana's story. If you want to reach out to Dana you can find her here on Fb. https://www.facebook.com/yayitsdayday
Jacob Rich tells about his fight with Inflammatory Bowel Disease and how it affected his life and almost killed him. I first met Jacob when my son Rhett was in the hospital at Saint Joseph's in Savannah, Ga. He saw my Fb post and was moved by Rhett's story and he reached out to Rhett to let him know that everything was going to be ok. Jacob is living proof that it's not the end of the world to have an Ileostomy bag, but instead, it saved his life. For the next few weeks,I want to bring recognition to IBS, UC, Crohn's, and Auto Immune Disease. Jacob is 26 years old and lives in Griffin, Ga. Jacob enjoys sports and playing music. He works for insurance companies inspecting roofs. He loves spend time with friends and family and he loves living his best life now! He was diagnosed with Ulcerated Colitis/Crohn's Disease at the age of 18. When he was 22, he had a total colectomy and went through a series of surgeries. As he healed, he finally had the surgery where they form a J-Pouch and they actually create a rectum. The Ileostomy was eventually reversed and now Jacob is living his best life ever. FREE of disease and pain. The surgery didn't come without a mountain to climb. On two different occasions, Jacob felt as if he were dying and wasn't going to pull through. But God was not finished with him. I am inspired by this young man, his strength and his faith in God! We are so grateful to have him in our lives for such a time as this. I hope you are inspired by his story so share this podcast with a friend! If you'd like to get in touch with Jacob, you can contact him here: Email: Richjacob8@gmail.com Facebook: https://facebook.com/1473797516/ Instagram: www.instagram.com/Jacob_Rich96
Intro (00:03) This week's guest is Matilda from Sweden. We met on Instagram She has Ulcerative colitis She has been in an ileostomy since 2012 You've had your ostomy since 2012. So that's like 10 years now? Yes. anniversary, and I'm so excited. In September, we're gonna celebrate in some way. I love it. I love it. And it's not that you want to celebrate it. So why do you want to celebrate it? Like what? Why is it such a beautiful thing? Because it's a crazy amount of time. 10 years with an ileostomy because from the beginning, it was said that I would have it for two years. And back then it felt like that was forever. How am I going to do this? And now, like my years has literally flown by. And I mean, my bag, which I'm calling Guna. It's a Swedish name. It's his birthday. So, I of course I had to celebrate. I believe it's, it's our second it was our second chance at life. So, we should be celebrating. Yes, yes, of course. I mean, when you look back at that day, like the surgery day, of course, it's a bit traumatic. But for every year from that, it feels like it's an extra year of life. Because that point changed my life from my sickness. Her Story (02:46) I got my diagnosis of ulcerative colitis when I was 15 years old. And back then were well, in my family, we kind of have way more than one having this problem with our tummies and both with Crohn's and Ulcerative. So, yeah, we knew fast that it was something like that. The flares come and go with ulcerative, the inflammation, like is active or not active, and then you need more medication and so on. That worked pretty fine for nearly two years, until I got really bad and nothing helped. I had high fever, couldn't eat anything. I lived on the hospital. So, in the hospital, they really like focused and tried everything at once. I was without food. I had a food drip It was emergency surgery on a Saturday, and they will move a whole colon. And when I woke up from that, I had an ileostomy but also the fever was gone. So, it was literally the sickness was taken out of my body. That must have felt so amazing. When the sickness was just taken from your body. How did you feel? (04:43) At that time, when you get this diagnose, my doctors always said a stoma is the last way out. You don't want to end up there. But there's always that option. And of course, you don't want to do surgery if you if not needed. I just want to get out and be healthy. So, when we did that surgery, and that actually made things better. Even if I my body was extremely weak and to recover from an open tummy surgery, it's a process. But at least it felt like now we're going in the right direction. So, it wasn't the end. For me. It was like, the new first abitilty to actually be able to get my life back. I'm just going to bag, I'm just in a bag, I just wanted my life back. Colitis and Crohn's it's debilitating. You know, it's when you're lying in bed. And sometimes you just can't get up and you can't focus and can't function. And all you're doing is worrying about what the next day So now you're in your bag, and you're back in school, you're living you're living your life. You're always on a beach in a bikini!(06:44) I've been to a lot of beaches. This like period of Corona has stopped me from the beaches because Sweden is cold. So like, I'm really, really excited to be able to travel again to see like new places new beaches. Yeah, I love I love warmer weather. After graduation, I went backpacking, because I wanted to do what I should do with or without the bag. So, I had one year off from high school until at uni and went backpacking. And then there was my like, the first time of really many, many beaches. I love that now let's talk about that. Because there's so many people so you get your get your get your bag, you're healthy, you're in between, you know, graduation and university and you're like, I'm going to go backpacking, that would probably frighten most people who are in an ostomy. How do I go backpacking? How do you carry all the bags and everything you need? What was that year? 08:12 Well, I was only away for three months, but that's still a lot of luggage and bags for everyone having a stoma? And yes, there is logistics to plan to be able to do it. Of course, it's not like I'm going tomorrow. But I checked with my stoma nurse, is this like a crazy? Or is it possible to do it? I literally had a big backpack. I had very much extra supplies to because in you know, when you are swimming and in warmer climates, it you can be needing changes more often. I had a lot with me, and I always had for two weeks in my hand luggage in case of the big backpack would go away during the flight. I think around two weeks in my friend's backpack. So, I like had the portions out in case of something happens. We went around the globe, we started with a shortstop in the US, we had a few days in California, LA, and then we went to Fiji, New Zealand, Australia, Hong Kong, and then back. Oh, that's a pretty good route. But it's that I really want to live, if you want to go on vacation or a longer vacation like a backpacking trip. It is possible. That is important. It is possible just plan. I love to travel, if I didn't get my stoma I'd be with my ulcerative colitis, then I would be more worried about traveling because you never know if you're sick tomorrow with ulcerative colitis if there will be a flare from the inflammation. So, the stoma has actually made me more secure to travel. Where did you find that confidence from where does that come from? (15:00) I actually got that question this week on Instagram. And I don't really know if I have a good answer to it. Because I just did it from the beginning. Like, it hasn't been a question for me, even if yes, everyone, like, literally everyone looks at you, or look at looks at the bag. And that's important to know, if you go into the beach for the first time, yes, there will be eyes on you. But for me, it's important to know, or the people know that they are not looking because something is disgusting. They are looking because they haven't seen it before. I mean, I have had my stoma for 10 years, and I haven't met anyone or seen anyone at the beach with a Stoma. So of course, people are looking, because we don't see it, it's under our clothes, nobody sees that we have a stoma, and does that encourage me to actually be one of them, showing it because I love to swim, and I'm not going to stop swimming just because someone looks at it. But if you feel that it is like uncomfortable that everyone is looking at you, then you can just take a towel, or you can take a sweater or something just over you and then you will be totally anonymous. And I will usually compare it to being a celebrity. They can't hid. So, we can choose to be to be famous with when we're showing our bags at the beach. But don't feel for it anymore, then just coverage and nobody will care. What is the one thing that you think that they need to they need to know? (17:46) The important thing for me is if there is something you want to do now, with or without your stoma, try it. Try it with your stoma and try it in your way. And you don't have to go all in at the first time. You don't have to go backpacking, the first thing you do like to try to just sleep away from home I have seen everything since I got my stoma, like I'm doing it for the first time I went swimming for the first time, I went traveling for the first time, I went to school for the first time, like everything for the first time with a stoma and try that. And if that wasn't something for you, then don't do it or adjusted to the next time. Don't' let the stoma stop you from doing what you want to do in life. Whether it's work or school, travel, anything or like, yeah, you know, you can do everything for the first time. Find Matilda on Instagram @matildaahdrian
Intro (0.00) This week's guest is Stefanie and we met on Instagram Wait until you hear her accent! She was doing some amazing things out there on social media and I knew we needed her on the show. She is a 22 year old college student with her ostomy. Lives in Scotland Start of Her Story (1:13) Didn't know she would receive so much attention out on social media when she started posting. She continues to do it to help people and it is a safe place for her to feel comfortable talking about her experiences. Never had complications in the past, woke up one day and didn't feel very well. Drs told her it was a cold Couldn't got to school, was stuck in bed, started to deteriorate. Drs finally gave her a colonoscopy and found colitis She was glad they found something and it wasn't just in her head Was put on medication after medication, but her bowels were too far gone. Was told would have to wait a couple years for a different medication or get a bag She ended up choosing the bag after a year because she really didn't want it. Wished she would have spoken up sooner about it not being a cold and advocated for herself more. So now you're in your bag. I mean, you're young, like you're in college, and how was that? Like? What was that like when you first got it? (6:41) I thought the bag was going to be the worst possible outcome. At the time I thought It was disgusting, It was horrible. It was going to make me feel unattractive, it was going to be essentially my worst nightmare come into life. When I did get my bag, I did not like it. And I struggled a lot mentally and physically trying to deal with the changes. Like trying to look at myself in the mirror and recognize myself was difficult. Every morning, I would wake up, I didn't want to look at my bag, because I just wanted to pretend that it wasn't there. I didn't want to talk about it openly to people. Because let's be real who wants to talk about poo Thought it was going to be temporary and ended up with a second surgery to make it permanent. Second one was the hardest because it was permanent. Then she started feeling better and doing things (like getting out of bed) I had spent majority of my two years lying in my bed, homebound I was able to get up out of bed, I was able to keep food down, I was able to go out in the car and go to the shop, I was able to go and visit my grandpa, I was able to go and see my friends. That to me, was like, that's totally eye opener. Like, whoa. Like, it reminded me of what it feels like to be normal. And I was in no pain. And I thought, I forgot what that felt like, I forgot what it felt like to feel, you know, a sense of relief, because every day was challenging. slowly but surely as the time went on, I started to build relationship with my body. I started to love myself. You said you thought it was going to be ugly and smelly, and, awful, and who wants to talk about poo and all that stuff. But here you are. You're out on Instagram, you're answering some amazing questions that people ask you all the time, and you're showing your bag. And guess what? People in ostomies we talk about poo. And guess what that opens the door for other people to talk about poo? Because curious. They want to know. (12:37) When I had my Instagram page, my own personal one, if I was in a bikini, I had this body with nothing attached to it. And then suddenly, there's something there that wasn't there before. People started to ask What is that? That's how the conversation starts. It's such a good way to start conversations to start breaking down misconceptions and tackling taboo subjects. When I was going through everything, there wasn't someone like me that I had on the internet to talk to All you see are older people not younger ones. you can imagine anybody going through their journey of you know, IBD, Crohn's Colitis, cancer when they look on the internet, and that's all they're seen. That's daunting. That is terrifying. I remember how scared that would be I thought I do not want that on my body. No way in hell am I have enough on my body? But had I known back then that there was actually these black bags, these white bags, you can get bag covers, Lacey bags, very sexy bags, I would have been more ok with it. How school going? (17:42) It's is amazing. The fact that I'm even at University is a massive achievement in itself. That was something I never thought plausible. Back when I was ill. I'm studying psychology I'm actually going to change my degree. And I'm going to go and do community education. What are some of the top questions that they that people have asked you? (19:59) one of the biggest ones is when did you start exercising after your stoma surgery? How was affected? Because fitness has become a humongous part of my life. After all my surgeries. I take my health seriously. When people ask me, you know, how was my body and fluids after surgery? And how did I get back? How did you lose your weight after your surgery? After you're on steroids? Can I still wear dresses even with a stoma? Do you wear it horizontally? Do you read it vertically? Can I have sex after having my surgery? How do you manage having sex? Like, is that still a part of your life? Do you feel like it's different? Has that affected your confidence? How has your relationship been with the boyfriend? (22:36) I was really fortunate enough to have met my boyfriend in high school. So I've been with him. It's going to be eight years this year. So we were young, he's my high school sweetheart. So he was with me pre diagnosis, he was there from the very first symptom all the way through, you know, the ups in the very low lows. And then it was there with me all through my surgeries, everything. He's just been my constant, like he's been constant. So I'm quite fortunate in that sense. If I were single, I would tell them on the first date but that's me You don't need to feel obligated to tell people that you have one. I feel like there's a lot of pressure or must tell someone. If you don't feel comfortable, you don't have to you do that in your own time. What did you do to start your journey back to fitness? (25:56) I feel like that's when your recovery starts, the minute you wake up every movement that you do. Following on from that, it's your fitness journey to see the motional even just setting up a bit, getting out of bed standing up and going back to bed. That was like the start of my fitness on it. And I classify that as the start because that's when I started moving my body again. I strength train every day. But like that took time, that's two, that's two years on. I started from basics I worked on, a lot of core work had to build up of course, and because if you don't if your core, you can't do anything, it's so your core strength is so important. So I went back to basics, strapped it down and built my way up from there. I'm assuming it's really helped your mental health? (28:24) when you go through what we have went through, it is so detrimental to your mental health. It is ridiculous, like you're in such a dark place. And trying to find a way to cope with that can be hard. And luckily enough, you know, we found fitness as my absolute escape. I'll wake up every morning and even if I'm having a bad day, I know that when I go to the gym, I'm going to feel some sense of relief. You know that gyms, my outlet when I go to the gym, all these thoughts on the bodies or the or the anxiety that I feel just disappears. Closing: Now, if there was one last thing you would want to leave our listeners with? What would that what would that be?(33:42) That's such a hard question. There's so much I would like to see but essentially just take your time. Don't rush things. Don't feel like you have to be someone that you're not. Except, you know that even though things might not be turning out or be panning out the way you had expected them to. As cliche as it sounds, there is a light at the end of the tunnel, and you just need to persevere. Find what works for you. And do you Find Stefanie on Instagram @lifewithastoma_
This podcast was produced by the Emory Nursing Wound Ostomy Continence Nursing Education Center.
This podcast was produced by the Emory Nursing Wound Ostomy Continence Nursing Education Center.
This podcast was produced by the Emory Nursing Wound Ostomy Continence Nursing Education Center.
This podcast was produced by the Emory Nursing Wound Ostomy Continence Nursing Education Center.
Intro (0:00) This week's guest is Chium and we met on Instagram. She was out there with her Ostomy working out, doing all that fun stuff I love and I just needed to know her because she is such an inspiration out there! Start Of Her Story (00:55) Had her Ostomy due to an emergency situation in 2018. In and out of the hospital dealing with her Crohn's and flare-ups. Not in a great place at all. During a routine colonoscopy, they found a perforation in my colon which led to having the Ostomy put in. Have had it since then, and now she is able to live a much better quality of life than she had before and what she thought she was capable of. A blessing in disguise. Ileostomy - not yet permanent. Still remains to be seen. At the time of the surgery, it was the idea of being temporary because of the issues that popped up. Still need to go through the procedure and have it assessed to see if it can be reversed. Right now it will be there for a bit. Was a complete surprise when coming out of the procedure. Knew it could have been a possibility, but never expected it to become a reality. She was doing very poorly and what was happening with her bowels, was a thought that was in the back of her mind that it could happen. Not having time to research and understand what it was and how it could benefit held her back at first. Experiences Post Surgery (4:34) Was a lot of mental processing afterward because it was a shock. Her body changing so drastically and something synthetic is now a part of you with this taboo topic and stigma of POOP! The mental hurdle you have to get over is that this is not taking away from you and making you less of who you are. A huge wall was put up. Attractiveness, sex appeal, her pride, all took a huge hit. At first, I did not do much to get through that. Sat in self-pity and feeling bad. Got to a point where it became such an effortless process that somehow it clicked that it is not a big deal! Not sure when or what happened, but somehow clicked. The first part of getting over the hit her pride took. Decided she has been dealt this card and she can either choose to sit and wallow or do something. Didn't want her children to constantly see her like that either. Coming Out And Being Social After (9:12) When did you start going on social media and saying WOAH there are a bunch of people out there going through what you did. Before this was not active on social media at all. Facebook was for family and the extent of social media. Felt so isolated and did have that click, I knew that I wasn't the only one going through this. There are more people out there. Wanted someone else in this situation to maybe avoid a little bit of what I went through. This is why I started on Instagram to post anything I could. Discovered other individuals. 750,000 to 1 million people in the US with Ostomies Though it was a smaller community and no one likes to talk about this. Remember seeing something and being blown away by the number of people living with this. Was a sad moment because so many people living with this and it's so hidden. Part of the stigma is just older people who deal with this and this adds to the shame when you are younger. Someone else's journey helped you, now your journey is helping other people! What Are You Doing On A Daily Basis To Work On Your Health, Your Messaging & Mental Health (15:00) There are days when you don't want to do anything and veg out, and I think that helps my mental health, you do need those days. Should have to be on the go and in a constant state of rush. If I feel tired, I do a better job of listening to myself and telling myself to take a break. Tried to be more self-reflective and take a hard look at myself. Started in the hospital when recovering from surgery. Recognized I needed to change the way I was eating and approach food with a more open mindset. Starting with food opened the door to educating myself on other things. Exercise came next. Realized I was not active which is probably playing a huge role in being over-stressed, inflamed, and other things. Found out about the gym, different exercises. Understand what I am going to do. Worked with a personal trainer to feel more comfortable. Didn't want to do anything to hinder me because of the Ostomy. Trainer pushed me to get out of my corner, but kept it within a reasonable pace and allowed me to feel comfortable. Did end up with Peristomal Hernia in the long run because I went from being a sedentary person to trying to work out 5-6 times a week. Recently I had surgery for that hernia. So that concern was big for me in the beginning but I didn't realize how easy it can pop up. When I started to really educate myself on nutrition and exercise and get into it, walking is better and really good for you. Closing (24:50) If there was one thing you would want to say to the listeners, what would that thing be? Having an Ostomy is a way to get your life back under control. It may not be what you thought or what you envisioned, but it definitely is a new door opening up to help you, not hinder you. Find her on Instagram @Chium816
Intro (0:00) Today's guest is Amy Hart In an Ileostomy due to colon cancer Mom to 2 little girls. She has an amazing story, going through Colon cancer THROUGH covid! The Beginning Of Amy's Story And How It All Started (1:28) Diagnosed in November of 2019. On the heels of my daughter's birthday. Approaching her birthday, started having a lot of changes in bowel movements. Was always a slow-moving human, but then it started moving fast and furious. Started seeking therapy thinking it was something to do after having children. Chalked it up to PPD or other things, but doctors didn't think anything was wrong. Her body was speaking but did not know what it was saying. Intense abdominal pain and cramping. Bleeding began in the stool and it was not just a little. Alternating with feeling sick and not being able to go to the bathroom fully. Emptying bowels completely. Knew something was not right. Listen to your family history. Grandmother died of Colon Cancer Mother died of Uterine Cancer No concept of genetic testing until was diagnosed with cancer. Had to fight a doctor to give me a colonoscopy because I was so healthy. When they did it, they found cancer immediately and said it was in later stages. Has been a difficult process for her, and continues to be a big challenge for her. Knowing this information is so powerful because she will be forever monitoring her body. Have now had other family members get checked because of what she has gone through to make sure they are safe. Looking Forward (10:25) Wanted to hide away forever after getting her Ostomy But THIS wasn't who she was. How I found her on Instagram! A lot of people may not understand it, but they see us through it. She has found confidence that she didn't have before. She was not easy on herself, she was mean to her and she did not need to be. Didn't pick this life, but you are doing it and you are owning it! You are not alone doing this. Surgery & Ostomy (12:18) Diagnosis November 2019 through colonoscopy. Then MRI and CT and another colonoscopy afterward to biopsy the tissue to confirm Stage 3B Colorectal Cancer. Genetic testing confirmed Lynch Syndrome Predisposition to multiple cancers. Colon, Uterine, Bladder, and Kidney. Marker from genetic testing came back at 80% Colon Cancer. So when the Surgeon got that they knew they should be as aggressive as possible. 2 years out of surgery and numbers are still scary. We should all know our genetic testing whether it's genetic testing or something else. After Lynch Syndrome Diagnosis went in for Radiation for 6 weeks. December 9th - January 14th. I had a 6 week break then had surgery in March. Took the entire colon. - Ileostomy to get everything or less of a chance of coming back. Surgeon and Tumor board looked at the case and said to remove the entire colon and everything beneath it. Total Proctocolectomy with an end Ileostomy and ATR reconstructions BIG thing saying if you looked at the inside picture of a body, she would have nothing from the colon down. Reason for that extreme version of surgery is because she is young and wanted to be there for her kids. This is the best thing you can do to have one surgery and have it over with and give yourself the best chance. At the end of the day, it came down to being done with it and not having to worry about all of the “What ifs” Post Surgery (21:00) Came out of surgery and the minute woke up in the ICU would not let the nurse help her with that. That was her way of dealing with it Researched how to take care of it and everything so she was ready! Woke up and looked at it, puked then got to it. Because of the lack of personal stuff with covid and not allowing any visitors, gave her a lot of time to get up close and personal with herself and have not spent a week alone in a long time. Forced her to really say are you going to do this and get up or boohoo through this. We all have a choice, everything in life is a choice and we all have these choices. The difference is getting better and getting louder. Do have these moments of why me and poor me, and any of us who have gone through something devastating in our life have these thoughts. But LOVE to see the other side of it too. We are still all walking this path. “This is the life we have been given and I am going to do what I think is best.” Can say this is really hard, I don't want others to go through it, but you can have good days and enjoy life. You can live and walk with it. Closing (33:00) Love the most that you shared about the mindset. The things you went through that it can be a dark path, but you chose not to go down that dark path. Live your life the best you can. We are all doing it and trying to make sense of what our path is. Your story is important so live it! We only get this one and when it's over that is it. Look at it and say, it wasn't perfect, but I showed up anyway and I had some fun. Find Amy Hart on Instagram. @barefootprofessional @barefootostomate I wish none of us had to go through this, but I am glad it has led us here.
Let's talk about what happens while you are on vacation. In this episode, I talk about going to the beach in a bikini and how even after 6 years I still have moments of insecurity! I also talk about what happened on a run I had while away. Oh boy things do happen.
Ask the Dr! This episode is chock FULL of information about how to deal with hydration and blockages directly from Dr. Joga Ivatury, Chief of Colorectal Surgery at Dell Medical School at University Of Texas Austin, and my surgeon. We all have so many questions about life in our ostomies so I thought it would be great to create some ASK THE DR episodes. So get ready to listen in and learn how the body handles hydration issues when you are in an ileostomy and colostomy. We also discuss what to do in the case of blockages and how to prevent them.
Making a statement and becoming Mrs. World America 2021! In this episode, I speak with the current Mrs. World America, Robin Brown. We chat about: How her ostomy story began What brought her into wanting to do pageants What it was like to do pageants in an ostomy Being an advocate What Robin Did To Help Her Move Forward In Her Life From Feeling Stuck After Her Ostomy Some Things she has Done Being Mrs. World America, 2021 Instagram @ostomyqueen
AJ is a survivor and a fighter. He was diagnosed with Crohn's disease at the age of 10. He had been very athletic as a child and started losing a lot of weight. He rebelled after parental issues when he got older. Which led to drugs and even some time in prison. After abusing his body he ended up with a transverse colon which led to a permanent ostomy. AJ has turned his life around and is a proud dad of 2. He believes that: "The most important thing in my opinion, is the mental game. Life begins in your mind and your thoughts become outside of you. If life gets you into a negative mindset and you allow yourself to stay there, it will only bread and perpetuate more negativity and energy that is not good for you" You can find AJ on Facebook AJ Barbosa or on Instagram @imthtcrohnie
It's my first solo episode of the new year so I wanted to talk about nutrition and exercise! At the beginning of the year, we always set these goals we want to achieve for the year, so today I want to chat a little about some tips that I have for you to help you stick to your goals and feel good! I am not a stickler for the scale, I just want to feel good and be able to move my body! So in today's podcast, I am going to talk to you about what my diet looks like, what I am eating to keep me fueled. What I do for a workout routine and easy ways to move your body without even leaving your house! And what supplements I take to help support my body, my health, and my immune system to help me to stay healthy! We need to be healthy. We need to move our bodies as much as possible. It is so good for our mind frame and gives us so many feel-good endorphins to keep us going through the goals we set for ourselves! Let me know what resonates with you from today's episode. What do you do to keep yourself motivated and feeling good all year long?
Ashlyn is 1 year out from having her Ostomy and from her perspective, it has really been a year of acceptance for her. After going in and out of remission with her UC over the years, it finally got to a point where it was truly a life or death situation. The last thing that had to be done to save her life as the medications and treatments stopped working was to get part of her colon removed and have an Ileostomy put in. The year post-op was a battle with multiple hospitalizations following her surgery, losing all of her hair, and then working on how she can find herself again and adjust to this new normal and accept herself and her situation. We can both agree that the mental aspect of recovery is one of the hardest when it comes to this. But just really ensuring that you have this community around you that supports you and is there for you is so needed to thrive in this new life. “Believe in yourself and finding a way to love yourself is the key to sort of everything else. For me, once I was able to accept myself and my new body and my new hair, and all these things I was going through. I felt like the rest kind of just came naturally. And I think other people can sense that as well.” You can find Ashlyn on Instagram @ashlynlaskey as well as her youtube channel, The Roaring Redhead.
Heather's journey started as a young child with stomach issues and doctors always telling me nothing was wrong. Fast forward years down the road and Heather was in constant pain with Ulcer Colitis, then faced a Crohn's diagnosis. Receiving these diagnoses lead her down a long path of healing holistically and doing things to get her life back. She learned about the importance of a clean, organic and holistic lifestyle and diet and started making changes to her everyday life. After a cancer diagnosis, Heather was forced to have surgery to have an Ileostomy, but continuously stayed positive throughout it all! This is not a roadblock for her. And throughout her whole journey, she always felt that people should not feel sorry for her. But through the whole journey, she thought, “1) What am I supposed to learn from this… And 2) this did not happen to me, it happened for me. It made me a better person all the way around. It has given me the knowledge I didn't know before, and a passion to help others. To me, I find this a blessing!” Heather's journey has given her the freedom to do things again and she is living her life the way she wants, helping people go through what she has and teaching them the knowledge she gained during her journey. Definitely take a little time today to check out her podcast, it's a good one!! You can find Heather here at @heathermoffatthealing on IG and Facebook
Genine is another beautiful soul that I had the opportunity to have here on The Beautiful Bag podcast this past week! She was in an Ileostomy for over a year, which was supposed to be temporary, but through more struggles than the doctors anticipated, got surgery this past September to get her permanent Colostomy! Genine is now THRIVING and enjoying her life, pain-free with her children and grandchildren. Her mindset is in an incredible place now that she can actually live her life the way she wanted to. No more pain, no more dark days and not wanting to be here anymore. This life-saving device has given her the opportunity to be happy again and have the will to live and be here to talk with us about her struggles and her journey. I am so grateful that she was able to be so honest and upfront about what she went through and share with others that they are not alone if they feel like this. There is light at the end of that dark tunnel. You just have to be willing to try something different to feel good again! “ Don't be afraid. Don't live in fear. Don't let fear control you! If you are ill and there is something out there that can help you, do not live in fear of trying it! Go for it and give it a try! Living in pain and suffering is not good mentally and it's just not good for you. Don't live in pain if you have this option. Don't be afraid of this little bandaid that can save your life and don't let that fear of the unknown stop you!”
Rita is brand new with her Ostomy! She struggled for years with Crohn's and Cancer and for years her doctors told her that getting a Colostomy would be the best chance for her to lead a normal life. But succumbed by fear of the stigma an Ostomy can carry, she continued on with her life hoping that things would get better. For the last 2 years, she has been through a lot with cancer treatments and just feeling horrible, so when things did not get better she knew that she had to move forward with surgery to get her Colostomy. 8 weeks post-surgery and I am so excited to have been able to talk with Rita. She has given us and our listeners a new perspective on the before and after of getting this life-changing surgery. She went from denial and ignoring the doctors, to getting surgery and entering a really dark place, to finding a community that supports her and coming to the realization that SHE HAS BEEN given this new life! She has this new opportunity to feel better and truly live her life to the fullest! I am so happy she is here with us today. I am so happy she can talk with us about her journey and how she has overcome physical, mental, and emotional struggles just in these few short months. She is truly remarkable and an inspiration to anyone in our shoes. “I know it's easy to say. “Stay positive.” But I want people to know that this is not the end of life. This is the beginning of life. I need people to understand that! Because I was that way. I thought it was the end of my life. But it is just the beginning.” “This is the first page of a brand new book… Chapter 1. And I am not sure how the book will end, but I do know that in it, it will say that I never gave up! @rita_follett
JD is a true fighter and he is alive today to talk about it. After a motorcycle accident that left him clinging to life with breaking more than half the bones in his body, being in an induced coma for over a month, and being told he would never walk again, he is defining the odds and really has an incredible story to tell. The accident also left him with an ostomy. But he has decided to not dwell on this and he reminds himself every day that this all happened for a reason. It happened so that he can talk about it, he can share his journey, his struggles, and encourage others to shift their perspective and mindset when life changes so drastically like this. Because without that change in your thinking, you will give up and not see your true potential. “Anyone going through anything physical or mental in your daily life or job, keep persistent, keep resilient, keep pushing because everything starts from the mental aspect. Once you let yourself break down completely mentally, then that is when everything is gone. So keep consistent and keep trying your best every day.” You have to listen to this story of perseverance after being on the brink of death. We are so honored that JD is here to talk to us about this today. JD on Instagram @thesbkid1 LeeAnne on Instagram @leeannehayden #ostomy #ostomyawareness #thebeautifulbagpodcast #beautifulbagpodcast #secondchanceatlife
In this episode, I virtually sit down with Sam Kraus to discuss his experience with Ulcerative Colitis. Sam shares his story from diagnosis to his decision to get an Ileostomy. We also discuss his recovery, relationship with food post surgery and how living with a chronic illness can be isolating.You can find Sam on Instagram @s_kraus05 Hosted on Acast. See acast.com/privacy for more information.
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