The Beautiful Bag is a Podcast for anyone who is in an Ostomy, may have to be in one and those that want to learn more about what life is like living in one. Each week I will be hosting a guest, sharing a story or educating you on what it is all about.
In this episode, LeeAnne Hayden interviews Elizabeth, who shares her personal journey with Crohn's disease and ulcerative colitis. Elizabeth discusses her diagnosis, the challenges of living with IBD, her experiences with various treatments, and the impact of lifestyle changes on her health. She also talks about her surgeries, including the decision to have a stoma, and how she navigated life during the COVID-19 pandemic. The conversation highlights the importance of nutrition, mental health, and support in managing chronic illness. In this conversation, Elizabeth shares her journey of living with a stoma, emphasizing the importance of community support and the positive impact of social media in her healing process. She discusses her approach to nutrition post-surgery, highlighting the trial and error involved in finding what works for her body. The conversation also delves into the significance of supplements in maintaining health and wellness, as well as the shared experiences of navigating life with chronic conditions. The episode concludes with a focus on the importance of personal journeys and the support found within the community.TakeawaysElizabeth was diagnosed with Crohn's and colitis in 2009.She experienced severe symptoms for over a decade before diagnosis.Nutrition became a passion for Elizabeth due to her health struggles.She had multiple flare-ups and was often put on steroids.Elizabeth underwent surgery to manage her condition, including a stoma.She learned the importance of vitamin D for her health.Living in Bali positively impacted her well-being.Elizabeth transitioned to working for herself, which improved her quality of life.She faced challenges during the COVID-19 pandemic after her surgeries.Elizabeth emphasizes the importance of mental health in managing chronic illness. I was one of the lucky ones because my passions were around health and wellness.I went on Instagram and found a community of people living with stomas.I was actually very positive and grateful going in.The more we share our journeys, the better it will be for the next generation.Food is everything, and it's all trial and error for each of us.Our bodies are very smart; they will tell us what's going on.I can't have fiber because it causes blockages for me.I take all the supplements that help with inflammation and health.Living with a stoma has been a massive trial and error.Community support is crucial in navigating health challenges.
In this episode of The Beautiful Bag podcast, host LeeAnne speaks with Nina Hayes, a nutritionist and yoga instructor who shares her journey with ostomy and how it has transformed her life. They discuss the importance of yoga and meditation in healing, the challenges of nutrition for those with ostomies, and practical tips for traveling with an ostomy. Nina emphasizes the significance of intuitive eating and how it empowers individuals to listen to their bodies. The conversation concludes with Nina's insights on vulnerability as a strength and resources for those seeking support.takeawaysNina's journey with ostomy began in 2002 after her colon was removed.Yoga has been a crucial practice for Nina, helping her manage pain and improve posture.Intuitive eating allows individuals to trust their bodies and make informed food choices.Traveling with an ostomy requires careful planning and packing extra supplies.Nina emphasizes the importance of community and support for those with ostomies.Practicing yoga can help alleviate adhesions and prevent further surgeries.Nutrition for ostomy patients can include pureed vegetables and juices.Nina offers a 12-week transformational program for women with ostomies.The journey with an ostomy can lead to personal growth and empowerment.Vulnerability is a strength that can foster connection and resilience.
In this episode, LeeAnne Hayden interviews Michelle Valentino, who shares her inspiring journey of living with an ostomy after years of battling chronic illness. Michelle discusses her early health struggles, the challenges of motherhood while managing her condition, and the impact of her surgery during the COVID-19 pandemic. She emphasizes the importance of community support, self-acceptance, and resilience in overcoming the stigma associated with living with an ostomy. Michelle's story is a testament to the strength of the human spirit and the power of connection in navigating life's challenges.TakeawaysMichelle's health struggles began at a young age, leading to a diagnosis of ulcerative colitis.Embarrassment and fear often prevent individuals from seeking help for health issues.Life with chronic illness can be challenging, but it doesn't have to define one's identity.Motherhood brought additional health challenges, but Michelle persevered.Surgery was a turning point, but the COVID-19 pandemic complicated the process.Adjusting to life with an ostomy requires patience and support.Overcoming embarrassing moments is part of the journey to self-acceptance.Finding a supportive community is crucial for mental health and resilience.Life after surgery can lead to newfound freedom and energy.It's important to share experiences to help others feel less alone.
In this episode, Krista shares her inspiring journey of living with Crohn's disease since childhood and her decision to undergo ostomy surgery. She discusses the challenges she faced, including pain and incontinence, and how she advocated for her health. Krista highlights the positive changes in her life post-surgery and offers encouragement to others facing similar health challenges.TakeawaysKrista was diagnosed with Crohn's disease at a young age.She experienced significant challenges before her ostomy surgery.Advocacy for her health was crucial in her journey.The decision for surgery was influenced by her upcoming wedding.Post-surgery, Krista has experienced a better quality of life.She emphasizes the importance of community support on Instagram.Living with an ostomy has brought unexpected positives.Krista encourages others to not let their illness define them.She shares that it's important to express feelings about health.Life can improve significantly after making difficult health decisions.
In this episode of The Beautiful Bag podcast, host LeeAnne Hayden speaks with Lauren Beach, a Crohn's disease survivor who shares her journey from diagnosis at a young age to living with an ostomy. Lauren discusses the challenges she faced during her teenage years, including health struggles, body image issues, and the impact on her dating life. She emphasizes the importance of self-acceptance, community support, and maintaining a positive outlook. The conversation also touches on fitness and how Lauren has adapted her workout routine post-surgery, proving that a fulfilling life is possible with an ostomy. The episode concludes with Lauren's inspiring message about resilience and finding joy in life despite challenges.TakeawaysLauren was diagnosed with Crohn's disease at 12 years old.She faced significant health challenges during her teenage years.Living with an ostomy has its ups and downs, but it's manageable.Dating can be challenging, but honesty is key.Fitness is still possible and beneficial with an ostomy.Community support on social media has been inspiring for Lauren.Self-acceptance is crucial for mental health and confidence.Accidents can happen, but they are not the end of the world.Positivity can help navigate life's challenges.Lauren encourages others to find joy and gratitude in life.
In this episode, LeeAnne Hayden shares her personal journey with small bowel obstructions and adhesions, detailing her experiences in the hospital, the impact on her health, and the dietary changes she has made to manage her condition. She emphasizes the importance of understanding adhesions, the challenges of navigating health issues, and the need for community support. LeeAnne also explores alternative remedies and practices to improve her well-being, ultimately encouraging listeners to take charge of their health and share their own stories.takeawaysLeeAnne shares her personal journey with small bowel obstructions.Understanding adhesions is crucial for managing health post-surgery.Dietary changes can significantly impact digestive health.Hospital visits can be daunting but are necessary for treatment.Maintaining a soft stool is essential for preventing obstructions.Alternative remedies like castor oil may help with adhesions.Coca-Cola is mentioned as a potential remedy for blockages.Community support is vital for those dealing with health issues.LeeAnne emphasizes the importance of self-advocacy in healthcare.Living with a chronic condition requires ongoing adjustments and learning.
In this episode, Kim Fleck shares her personal journey through health challenges leading to her ileostomy. From her background as a special education teacher to her struggles with misdiagnosis and autoimmune issues, Kim's story highlights resilience and the importance of community support. She discusses her experiences with various treatments, the impact of her health on her life, and her exploration of natural remedies and dietary changes. In this conversation, the speakers delve into the misconceptions surrounding vegetarianism, the importance of self-discovery, and the transformative journey of healing through alternative medicine. They share personal stories of resilience, the significance of listening to one's body, and the power of relationships with healers. The discussion emphasizes the need for quiet reflection and the choice to spiral up in life despite challenges.TakeawaysThis is my perspective, not a prescription for others.I had no previous health issues before moving to Connecticut.I got obsessed with P90X to stay fit despite my health issues.Losing all my hair was a significant emotional challenge.Brain lesions affected only 1-2% of the population, and I was one of them.I decided to embrace my appearance and never wore a wig again.I developed a cancer imposter syndrome due to misconceptions about my health.Hospitalization led to my permanent ileostomy, which changed my life.I learned the importance of advocating for my health and choices.Dietary changes became crucial in managing my health issues. There's a lot of processed foods in vegetarian diets.Meeting Dr. Ming Wu was a turning point in my health journey.Self-discovery is crucial for healing.Listening to your body can guide your health choices.Qigong and meditation helped me find peace.Reinventing life after teaching was necessary for my growth.Healing involves building relationships with supportive healers.Vulnerability is a strength, not a weakness.You have a choice to spiral up or down in life.Knowing yourself is key to navigating health challenges.
In this episode, Molly shares her unique journey of living with an ostomy, starting from her childhood struggles with chronic constipation to her eventual ileostomy surgery. She discusses the challenges she faced, the importance of community support, and how her perspective on life has changed since her surgery. Molly emphasizes the significance of mental health and acceptance in navigating life with an ostomy, and she inspires listeners to embrace their journeys and seek support.TakeawaysMolly's journey began with chronic constipation from birth.She faced numerous medical challenges before her ileostomy surgery.The ostomy community is supportive and empowering.Living with an ostomy has improved Molly's quality of life.Mental health is crucial in the journey of acceptance.Finding a support system can help process emotions.Molly's condition is linked to Ehlers-Danlos syndrome.She encourages others to share their stories and connect.Ostomy is not a death sentence, but a life sentence.Authenticity and openness can inspire others.
In this episode of the Beautiful Bag podcast, LeeAnne Hayden explores the multifaceted nature of burnout, particularly in the context of living with an ostomy. She delves into the emotional, physical, and behavioral signs of burnout, emphasizing the importance of recognizing these symptoms as the first step towards recovery. LeeAnne shares practical tools for assessing life balance through the 'bucket method' and encourages listeners to take actionable steps to fill their life buckets. The episode concludes with an introduction to the Worthy of Wellness Club, a community initiative aimed at helping individuals overcome burnout and live a balanced, purposeful life.TakeawaysBurnout encompasses emotional, physical, and spiritual exhaustion.Recognizing the signs of burnout is crucial for recovery.Saying no is essential for maintaining personal energy.Assessing life balance can be done through the bucket method.You are worthy of living a fulfilling life, free from burnout.
In this episode of the Beautiful Bag Podcast, host LeeAnne Interviews Danielle and Joe as they share their personal journeys with ostomy surgeries due to Crohn's disease and ulcerative colitis. They discuss how they met through social media, the birth of their advocacy platform 'Double Bagging It', and the importance of community support. The conversation highlights the transformative impact of ostomy on their lives, the freedom it has brought them, and their mission to raise awareness and share stories within the ostomy community.Takeaways:The importance of community support for those with ostomies.Social media can be a powerful tool for connection.Ostomy can lead to a more fulfilling life.Advocacy is crucial in raising awareness about ostomy.Personal stories can inspire and help others.Living with an ostomy can be liberating.It's okay to share your journey in your own way.Finding your tribe is essential for emotional support.Health journeys are unique and should not be compared.Embracing life after ostomy surgery is possible and rewarding.
In this podcast episode, Stephanie Benson shares her inspiring journey of living with Crohn's disease and navigating life with an ostomy. From her initial diagnosis to the challenges of dating and self-acceptance, Stephanie discusses the importance of community support and finding strength in adversity. She offers practical tips for managing health, fashion choices, and maintaining a positive outlook despite the struggles of chronic illness. The conversation emphasizes the significance of open communication and the power of shared experiences in fostering resilience and hope.TakeawaysStephanie was diagnosed with Crohn's disease in high school.Living with an ostomy has transformed Stephanie's life for the better.Community support is crucial for those dealing with chronic illness.Dating with an ostomy requires open communication and honesty.Fashion choices can be adapted to accommodate an ostomy.Managing health involves understanding personal dietary needs.Chronic illness can lead to unexpected blessings and growth.It's important to grieve the loss of the pre-illness self.Maintaining a positive outlook is essential for mental health.Finding a supportive community can make a significant difference.
In this episode of The Beautiful Bag podcast, host Speaker interviews Tom, a rectal cancer survivor who shares his journey from diagnosis to recovery. Tom discusses the initial shock of his diagnosis, the challenges of chemotherapy and surgery, and the adjustments he has made to life with an ostomy. He emphasizes the importance of support from family and community, the dietary changes he has experienced, and the various ostomy products available. Tom's story is one of resilience, hope, and a desire to help others facing similar challenges.TakeawaysTom was healthy until he experienced sudden pain.The importance of follow-up appointments cannot be overstated.Chemotherapy and radiation were part of Tom's treatment plan.Support from family was crucial during Tom's journey.Dietary changes were significant after surgery.Tom found strength in online communities.It's essential to try different ostomy products.There is a stigma around ostomies that needs to be addressed.Tom encourages others to reach out for support.You are not alone in your journey.
In this episode of The Beautiful Bag podcast, host and guest Brianna share an insightful conversation about living with an ostomy, her journey with Ehlers-Danlos syndrome, and the importance of raising awareness about ostomies. Brianna discusses her initial struggles, the adjustments she made after surgery, and how her perspective on life with a stoma has evolved over the years. She emphasizes that having an ostomy is not as daunting as many believe and shares her experiences to help others understand and accept their own journeys.TakeawaysBrianna has had her permanent ileostomy for over three years.She was diagnosed with Ehlers-Danlos syndrome, affecting her GI tract.Adjusting to life with an ostomy took time and patience.Brianna named her stoma Stella, which has become a part of her identity.She emphasizes the importance of raising ostomy awareness.Many people fear ostomies due to misconceptions about smell and lifestyle.Brianna's recovery journey included multiple surgeries and challenges.She has learned to navigate ostomy products and find what works best for her.Brianna encourages others to share their stories and experiences.Living with an ostomy can improve quality of life despite initial fears.
In this episode of the Beautiful Bag podcast, LeeAnne Hayden shares her personal journey through marriage, love, and the challenges she faced, including a cancer diagnosis and the impact it had on her relationship. She emphasizes the importance of communication, commitment, and resilience in navigating the ups and downs of marriage. LeeAnne reflects on her experiences, the lessons learned, and the significance of family and support in overcoming life's obstacles. Takeaways: February is often seen as the month of love, but love should be celebrated all year round. Marriage is a commitment that requires work and dedication. Facing challenges together can strengthen a relationship. Cancer can be a life-altering experience, but there is hope and support available. Adjusting to significant life changes, like a colostomy, requires open communication. Financial struggles can put a strain on relationships, but they can also lead to growth. Rebuilding a relationship often involves starting fresh and focusing on each other. Communication is essential for a healthy marriage. It's important to give each other space to grow and change. True love is about supporting each other through thick and thin. Chapters 00:00 Introduction and Overview of the Episode 10:14 Navigating Challenges in Marriage 17:05 Adjusting to Life with a Colostomy 25:01 Rebuilding the Relationship in New York
In this episode of The Beautiful Bag podcast, Yvonne Holly, known as Crohn's Mummy on Instagram, shares her profound journey with Crohn's disease, which began at the age of 11. She discusses her diagnosis, the challenges of living with a colostomy bag, and her experiences with pregnancy while managing her health. Yvonne's story highlights the resilience required to navigate chronic illness and motherhood, offering insights into the emotional and physical hurdles she faced along the way. In this conversation, Yvonne shares her profound journey through motherhood, health challenges, and the experience of living with an ostomy. She reflects on the emotional turmoil of her daughter's health struggles, her own battles with sepsis and surgeries, and how these experiences shaped her resilience. Yvonne emphasizes the importance of finding positivity in adversity and encourages open discussions about health issues to foster support and understanding. Takeaways: Yvonne was diagnosed with Crohn's disease at age 11. She underwent a colostomy in 2010, which became permanent in 2016. Living with a perianal abscess for nine years was a significant challenge. The colostomy bag provided relief and improved her quality of life. Pregnancy had a positive effect on her Crohn's symptoms. Yvonne had to plan her pregnancies around her health condition. She experienced complications during her second pregnancy. Her daughter Felicity faced health challenges at birth. Yvonne has undergone over 50 surgeries throughout her life. The support from the NHS was crucial during her pregnancies. It's not my fault, but I felt responsible. She needs to fight for her life before she learns to feed. My daughter is the strongest little girl I know. I was rushed in with sepsis again, it was scary. I just remember signing and saying, take it all away. I love my colostomy bag just as much as my children. My ostomy has given me a life back. You can always find the positivity in anything. Never suffer in silence, always talk about your illness. Talking about your illness can do wonderful things to your brain. Connect on Instagram: LeeAnne https://www.instagram.com/leeannehayden/ Yvonne https://www.instagram.com/crohns.mummy/
Summary In this episode of The Beautiful Bag podcast, host LeeAnne Hayden speaks with Kaya, who shares her journey with ulcerative colitis and living with an ostomy. Kaya discusses her diagnosis at a young age, the challenges of managing her health, and the emotional toll it took on her. She also shares her experiences with pregnancy, the transition to a J-pouch, and the support she received from her family and husband. Throughout the conversation, Kaya emphasizes the importance of self-advocacy, embracing one's situation, and helping others who face similar challenges. Takeaways: Kaya was diagnosed with ulcerative colitis at 14. She experienced significant weight loss and health challenges. Navigating life with an ostomy was initially overwhelming. Surgery was a turning point in her health journey. Transitioning to a J-pouch involved dietary adjustments. Pregnancy brought new health complications for Kaya. Support from family and friends was crucial during tough times. Kaya's husband played a significant role in her recovery. She learned to embrace her ostomy and share her story. Kaya encourages others to ask questions and seek support.
In this episode of the Beautiful Bag podcast, host LeeAnne Hayden celebrates her ninth anniversary with her stoma, sharing her personal journey from being an accountant to facing cancer and ultimately embracing life with an ostomy. LeeAnne reflects on the challenges she faced, the support from her community, and the lessons learned throughout her journey. She emphasizes the importance of sharing stories and connecting with others who have similar experiences, highlighting the resilience and empowerment that comes from overcoming adversity. Celebrating nine years with my stoma is a significant milestone. Sharing my story is important for both myself and others. Facing cancer led to unexpected life changes and growth. Community support plays a crucial role in healing and resilience. Life with an ostomy can be embraced with positivity and acceptance. The journey from accountant to sales was transformative. Health challenges can lead to new opportunities and paths. Surgery brought about fears, but also a sense of peace. Learning to live with an ostomy involves trial and error. Every experience contributes to personal growth and empowerment. Chapters 00:00 Celebrating Nine Years with My Stoma 02:53 The Journey Begins: From Accountant to Sales 05:48 Facing Health Challenges: The Discovery of Cancer 11:37 Surgery and the Unexpected: Life with an Ostomy 22:42 Embracing Life After Surgery: A New Normal 33:40 Reflections on Life: Celebrating Achievements and Community 37:51 Legal statement.mp3
In this episode of the Beautiful Bag podcast, LeeAnne Hayden discusses the concept of 'chic confidence,' which combines inner self-esteem with outward style. She shares personal experiences and practical tips on how to boost confidence through fashion, self-care, and community support. LeeAnne emphasizes the importance of feeling good inside and out, and how personal style can reflect one's unique personality. The conversation also touches on the significance of gratitude, self-talk, and the role of supportive communities in building confidence, especially for those living with an ostomy. Takeaways: Chic confidence is about feeling good inside and out. Fashion can significantly boost your confidence. It's important to wear clothes that reflect your personality. Building confidence takes time and small steps. Self-talk plays a crucial role in your confidence levels. Practicing gratitude can enhance your overall well-being. Surround yourself with supportive people to build confidence. Don't compare yourself to others; focus on your journey. Create a 'power outfit' that makes you feel confident. Community support is vital for personal growth and confidence. Chapters 00:00 Introduction to Chic Confidence 05:39 Fashion as a Confidence Booster 15:15 Inner Confidence and Self-Talk 23:40 The Importance of Community and Support 30:52 Legal statement.mp3
In this episode of the Beautiful Bag podcast, host LeeAnne Hayden returns after a seven-month hiatus to reflect on her experiences in 2024 and share her goals for 2025. She discusses the importance of setting personal, family, and business goals, and emphasizes the need for clarity and planning in achieving them. LeeAnne also invites listeners to engage with her and share their own goals as they embark on the new year together. LeeAnne expresses her excitement to return to podcasting after a long break. She reflects on the busy and fulfilling year of 2024, including personal travels and professional engagements. Setting clear and achievable goals is essential for personal growth and success. LeeAnne emphasizes the importance of self-care in goal setting. She shares her personal goal of abstaining from alcohol for a year and its significance. The podcast will feature more solo episodes alongside guest interviews in 2025. Listeners are encouraged to share their goals and topics they want to hear about. Vision boards can be a powerful tool for visualizing and achieving goals. LeeAnne highlights the importance of community and support in the journey of personal growth. She expresses her desire to reconnect with her audience and foster engagement.
Leanne Watanabe shares her journey with ulcerative colitis and the decision to undergo surgery to remove her colon. She discusses her late discovery of fitness and her initial motivation to work out for weight loss. Leanne talks about her mentor who introduced her to marathon running and helped her believe in her abilities. She shares her experience training for her first marathon while dealing with GI issues. Leanne discusses the impact of stress and her dysfunctional upbringing on her health. She talks about her struggle to accept her diagnosis and the various treatments she tried before deciding on surgery. LeeAnne Hayden shares her experience living with ulcerative colitis and undergoing surgery to have an ostomy. She emphasizes that living with a chronic illness is never easy, but she is grateful for the chance to live a healthy life. Hayden encourages others to embrace their bodies and not let their diagnosis dictate how they live and thrive. She discusses the importance of therapy and setting boundaries in her healing journey. Hayden also talks about her experience competing in fitness competitions and how it has helped her change her relationship with dieting and exercise. She concludes by emphasizing the importance of self-love in achieving personal goals. Takeaways Fitness can be a powerful tool for building confidence and achieving goals, even for those with chronic illnesses. Stress and a dysfunctional upbringing can contribute to the development and exacerbation of health issues. It is important to be your own advocate and seek out the best medical care available, even if it means traveling to different locations. Surgery can be a life-changing decision for those with severe refractory ulcerative colitis, offering the possibility of improved quality of life. Alternative therapies may provide temporary relief, but it is essential to weigh the potential benefits against the risks and costs. Living with a chronic illness is never easy, but it is important to embrace the chance to live a healthy life. Therapy and setting boundaries are crucial in the healing journey. Competing in fitness competitions can help change one's relationship with dieting and exercise. Self-love is the foundation for achieving personal goals. Chapters 00:00 Introduction and Summer Break Announcement 00:55 Leanne's Journey into Fitness 03:21 Navigating GI Issues While Training for a Marathon 08:06 The Role of Stress and Upbringing in Leanne's Health 14:11 Exploring Alternative Therapies for Ulcerative Colitis 27:46 Living with Ulcerative Colitis and Making the Decision for Surgery 29:13 Gratitude for a Chance at a Healthy Life 30:41 Overcoming Challenges and Embracing Life 31:39 Living Beyond the Diagnosis 33:05 The Power of Self-Confidence and Body Acceptance 35:30 Therapy and Setting Boundaries in the Healing Journey 39:16 Changing the Relationship with Dieting and Exercise 44:00 The Importance of Self-Love in Achieving Personal Goals
SummaryDana shares her 17-year journey with ulcerative colitis and the challenges she faced before ultimately getting an ostomy. She reflects on her carefree college years, multiple surgeries, and the disappointment of the J-pouch not working as expected. Dana discusses the emotional toll of living with a chronic illness and the importance of therapy and self-care. She highlights the silver linings of having an ostomy, such as improved sleep and the ability to enjoy life's moments. Dana emphasizes the need for education, support, and breaking the stigma surrounding ostomies. Takeaways Living with a chronic illness can be emotionally challenging, and therapy can be a valuable tool for coping and finding support. Having an ostomy can bring unexpected benefits, such as improved sleep and the ability to fully participate in life's activities. Education and awareness about ostomies are crucial for breaking the stigma and providing support to those who need it. It's important to ask questions, seek advice, and connect with others who have similar experiences to navigate life with an ostomy. "I hit my rock bottom after surgery. I feel like that person that I used to know was gone. Like that version of me was gone. I was not me anymore. I was, who am I?" "I started to find the silver linings. Like this, this is not that bad. Maybe this will make things a little bit easier. Like, you'll be able to sleep at night and you're not running to the bathroom and you're not having a million accidents." "I feel like I can finally stand by myself. Yeah. It's pretty cool." Chapters 00:00Introduction and Background 01:29Diagnosis and College Years 06:25The Need for an Ostomy 10:02Adjusting to Life with an Ostomy 13:27The Emotional Journey and Therapy 23:53Embracing Life with an Ostomy 32:55Empowering Others and Breaking the Stigma 41:00Final Thoughts and Advice
In this episode, host LeeAnne Hayden interviews Raina about her journey with an ostomy and her book 'Bare'. Raina shares her experiences with ulcerative colitis, her decision to get an ileostomy, and her subsequent journey with a J-pouch. She discusses the role of social media in her life and how it has helped her connect with others. Raina also talks about the challenges of dating with an ostomy and the importance of being open and honest about her condition. In this part of the conversation, LeeAnne Hayden discusses her experiences with relationships after getting an ileostomy. She shares how her first relationship after the surgery helped her feel loved and accepted with her bag. She also talks about the challenges of dating and having to disclose her condition to potential partners. LeeAnne emphasizes the importance of self-love and acceptance in navigating relationships with an ostomy. She also discusses her transition from being a wellness coach to a life coach and the power of journaling in her healing journey. Takeaways Raina's journey with ulcerative colitis led her to get an ileostomy and later a J-pouch. Social media has played a significant role in Raina's life, allowing her to connect with others and share her experiences. Dating with an ostomy can be challenging, but being open and honest about it is important. Raina's book 'Bare' is a candid and honest account of her journey with an ostomy. Having a supportive partner can help in feeling loved and accepted with an ostomy. Self-love and acceptance are crucial in navigating relationships with an ostomy. Disclosing one's condition to potential partners can be nerve-wracking, but it is important for open communication. Transitioning from a wellness coach to a life coach allowed LeeAnne to focus on deeper aspects of personal growth and mindset. Journaling can be a powerful tool for self-reflection, healing, and manifestation. "I think my soul knew I needed that community and needed to have that as this like, you know, just this voice to like keep going, even when I didn't want to sometimes." LeeAnne emphasizes that listeners should read this book, which you can find HERE Connect with Raina on Instagram Connect with LeeAnne on Instagram
Chloe Moody shares her unique experience of living with an ostomy since birth due to necrotizing enterocolitis. She discusses her childhood, including multiple surgeries and hospitalizations, as well as the challenges she faced in school, such as bullying and feeling different. Chloe emphasizes the importance of finding a supportive community, like the UOAA youth rally, and encourages parents to send their children to such events. She also talks about her journey of self-discovery, pursuing higher education, and her aspirations to teach and advocate for others with chronic illnesses. Chloe's story highlights the need for greater awareness and acceptance of ostomies. "You're not alone. We have a whole community now to support and uplift this next generation." "I've kind of been stifling my own voice a little bit because I've just had that messaging my whole life." https://www.instagram.com/chloemmoody/ https://www.instagram.com/leeannehayden/
LeeAnne introduces guest Ann Marie Lupacckino, who has had 3 ostomies. Ann Marie shares her journey, which began 18 years ago during pregnancy with a bowel perforation. Ann Marie underwent emergency surgery to remove her large intestine while pregnant. Despite challenges, Ann Marie gave birth full-term and underwent reversal surgery a year later. Ann Marie experienced complications, including severe anal fissures, leading to her decision for an ostomy last March. Complications post-surgery led to a second ostomy in October and a third surgery in February. Ann Marie emphasizes the impact of ostomies on her life and the importance of adaptation. Both LeeAnne and Ann Marie stress the supportive ostomy community and the resources available. Ann Marie looks forward to resuming her exercise routine once fully healed, highlighting the mental benefits. The conversation touches on the adjustments in diet and hydration with an ostomy. Ann Marie reflects on her journey, expressing gratitude for her surgeon and acceptance of her current situation.
In this episode I interview retire US navy man Dan Dry Dock Shockley. HIGHLIGHTS Being in the Navy and learning perseverance Recovering from a surgery and needing to be back on assignment after 9/11 Finding out about his rare genetic condition Living life in an ostomy His advocacy work How he lives by the 3 steps ADAPT, Improvise, Overcome You can find Dan on Instagram, Twitter or email him @ dandrydock@gmail.comperseverance
Introduction: LeeAnne expresses excitement for spring and its positive impact on wellness. Proper Hydration with an Iliostomy: Importance of hydration, especially with an Iliostomy. Tips for staying hydrated: carry water or herbal teas, use electrolytes. LeeAnne's personal hydration routine: drinking a gallon of water daily. Recommendations: Drink water before and after meals, monitor hydration levels. Exercise and Movement: Importance of exercise for overall wellness and mental health. LeeAnne's workout routine: daily walks, weightlifting, yoga. Suggestions for finding suitable exercises: walking, running, yoga, Pilates. Addressing concerns about hernias and stoma support belts. Stress Reduction and Self-Care: Importance of stress management for mental well-being. Strategies for stress reduction: journaling, taking baths, getting massages. Suggestions for self-care practices: meditation, breathwork, listening to the body. Sleep and Rest: Importance of quality sleep for physical and mental health. Tips for improving sleep: maintaining a consistent sleep schedule, limiting screen time before bed. Suggestions for enhancing sleep quality: exposure to sunlight in the morning, creating a bedtime routine. Encouragement to prioritize self-care and wellness practices. Reminder to seek support from healthcare professionals and online resources like UOAA. https://www.stealthbelt.com
Introduction: LeeAnne Hayden welcomes listeners to the episode from her loft, introducing Cass Roberts as her guest. They met at the UAA convention in August and bonded over their shared experiences. Dancing and Transformative Power: Cass shares her love for dancing and how it has been transformative for her. She reflects on the immense joy she experienced at the UAA convention, being surrounded by people with ostomies like herself. Cass's Journey with Crohn's Disease: Cass opens up about her journey with Crohn's disease, starting from her diagnosis at age 11 in rural Mississippi. She details the challenges of misdiagnosis, extensive treatments, and the impact on her physical and emotional well-being. Experience with Ostomy Surgery: Cass describes her initial aversion to the idea of having an ostomy and the fears she had to overcome. She shares the circumstances that led to her first ostomy surgery in 2008 and the subsequent complications that necessitated a permanent ostomy in 2013. Life with an Ostomy: Despite initial struggles, Cass shares how her life has flourished since embracing her ostomy. She pursued diverse interests, including a career as a truck driver and owning a Princess Tea Party company. She also reflects on memorable moments, such as performing at children's parties despite wardrobe mishaps. Embracing Confidence: Cass emphasizes the importance of confidence and self-acceptance. She encourages listeners to celebrate their uniqueness and to recognize that they are more than their medical conditions. Building Community: LeeAnne and Cass discuss the power of community in overcoming challenges associated with ostomies. They reflect on the increasing visibility and support available for individuals with ostomies, both online and through in-person gatherings like conferences. Current Endeavors: Cass shares her current role as a developmental interventionist, working with children with disabilities. She emphasizes the significance of advocating for oneself and others in navigating health challenges. Final Thoughts: Cass leaves listeners with a message of self-love and respect, encouraging everyone to recognize their inherent worth beyond any physical differences. Conclusion: LeeAnne expresses gratitude to Cass for sharing her inspiring journey and vibrant spirit with listeners, highlighting her resilience and positivity. Through their candid conversation, LeeAnne and Cass provide insight into the journey of living with an ostomy, emphasizing themes of resilience, self-acceptance, and the power of community.
In this episode, I, LeeAnne Hayden, emphasize the crucial role of nutrition in maintaining overall health and well-being. I stress the importance of consuming a balanced diet rich in nutrients, including whole grains, fruits, vegetables, lean meats, and healthy fats. Throughout the discussion, I recognize that individual preferences and tolerances vary, urging listeners to experiment and find what works best for their bodies. Supplementation is highlighted as a means to address potential nutrient deficiencies, particularly in light of changes in food quality and soil. I recommend high-quality supplements while advising listeners to consult healthcare providers before starting any supplementation regimen. Furthermore, I stress the significance of managing fluid intake, emphasizing hydration and the addition of electrolytes to water for optimal hydration. Listeners are encouraged to visit my website LeeAnneHayden.com for more information and resources on wellness. I also provide strategies for dining out, including reading menus carefully, asking about ingredients, and making adjustments to meals when necessary. Drawing from personal experiences, such as challenges after surgery, I underscore the importance of seeking expert advice from healthcare professionals, nutritionists, dieticians, and WOCN nurses. Finally, I invite listeners to connect with me on Instagram @instagram, YouTube LeeAnneHayden, and through my website LeeAnneHayden.com. Additionally, I offer a free wellness guide on my website for those interested in further resources.
Join us this week as Nikki Kilpatrick shares her inspiring journey through ostomy surgery and the profound impact of mindset and community support on her recovery. Nikki's story highlights the power of connecting with others who have undergone similar experiences, emphasizing the importance of positivity and advocacy in facing health challenges. Tune in to discover how Nikki's journey of resilience and empowerment can inspire hope and change lives. Guest: Nikki Kilpatrick Key Points: Nikki shares her experience of waking up from surgery to find her ostomy had been created differently than expected. Despite initial shock, Nikki embraced her new reality and found empowerment through self-care and community support. Connecting with others on social media platforms like Instagram and TikTok helped Nikki find hope and strength during her recovery. Nikki emphasizes the importance of mindset and positive community in facing health challenges and advocating for the treatment one deserves. By sharing her story, Nikki hopes to inspire others to find hope, resilience, and empowerment in their own journeys. Resources: Connect with Nikki on Instagram and TikTok for more inspiring content. Explore ostomy support groups on Facebook for community and guidance. Check out the "Beautiful Bag" podcast for stories of resilience and empowerment from individuals with ostomies. Host: LeeAnne Hayden Connect with Us: Follow us on Instagram: @thebeautifulbagpodcast Visit our website for more episodes and resources: leeannehayden.com
Title: Embracing Self-Love: Body Positivity and Self-Esteem Description: Join host LeeAnne Hayden in this powerful episode of the Beautiful Bag podcast as she delves into the crucial topics of body positivity and self-esteem. With a compassionate heart and insightful perspective, LeeAnne guides listeners through practical steps to cultivate self-love and acceptance, especially in the face of challenges like living with a stoma. In this episode, LeeAnne reflects on her own journey and shares personal experiences, offering relatable insights for listeners. From making the decision to love oneself to setting small achievable goals and practicing positive self-talk, she provides actionable strategies to uplift and empower individuals to embrace their unique beauty and worth. Discover the importance of surrounding oneself with positive role models and fostering a supportive community for mutual encouragement and growth. LeeAnne's heartfelt message reminds us all that we are loved, valued, and deserving of self-compassion. Tune in to this episode for inspiration, encouragement, and practical tips on how to nurture self-love and celebrate the beauty within. Show Notes: Introduction: Host: LeeAnne Hayden Theme: Body Positivity and Self-Esteem Dedicated to spreading love and empowerment Body Positivity: Importance of self-love and acceptance Overcoming societal norms and comparisons Making the decision to love oneself unconditionally Self-Esteem Building: Setting small achievable goals Practicing positive self-talk and affirmations Dressing in a way that makes you feel confident Finding supportive role models and communities Community Engagement: Invitation to join the Beautiful Bag community on Telegram Sharing the podcast episode to spread love and encouragement Conclusion: Reaffirmation of self-worth and beauty Gratitude for listeners and commitment to making a positive impact Listeners are encouraged to share their thoughts, experiences, and insights in the comments section and to join the Beautiful Bag community for ongoing support and encouragement. Together, let's embrace self-love and celebrate the beauty within each of us. Connect with LeeAnne Hayden: Instagram: @beautifulbagpodcast Instagram: @leeannehayden TikTok: @beautifulbagpodcast TikTok @leeannehayden1 YouTube: LeeAnne Hayden Join the Beautiful Bag Community on Telegram: [Link] Don't forget to subscribe and leave a review if you found this episode inspiring and helpful!
In this episode of The Beautiful Bag, host LeeAnne Hayden sits down with Jenny Harrison, a remarkable individual whose journey with gastrointestinal challenges serves as a testament to the power of strength and determination. Introduction: LeeAnne and Jenny dive deep into Jenny's journey, exploring the highs and lows, the triumphs and tribulations, and the invaluable lessons learned along the way. Key Points Covered: The Beginning of the Journey: Jenny shares the story of how her journey with gastrointestinal challenges began, from the removal of her gallbladder to the discovery of adhesions. Navigating the Unknown: Facing high output, dietary restrictions, and the constant threat of obstructions, Jenny discusses the daily challenges she encounters and how she perseveres through them. Finding Strength in Community: Through her work at Girls With Guts, Jenny found a supportive community of individuals who understood her struggles, offering encouragement, empathy, and a sense of belonging. Embracing the Journey: Jenny shares how she learned to embrace her ostomy as a symbol of strength and resilience, empowering herself to live life on her own terms. A Message of Hope: Jenny's journey serves as a beacon of hope for anyone facing gastrointestinal challenges, reminding us that with resilience, courage, and support, we can overcome even the greatest of obstacles. Connect with Us: Follow The Beautiful Bag on Instagram: @thebeautifulbagpodcast Follow LeeAnne on Instagram @leeannehayden Folllow Girls with Guts on Instagram @ibdgirls Join the conversation and share your story using the hashtag #TheBeautifulBag Tune in to this inspiring episode to discover the power of resilience and the beauty of embracing life's challenges with courage and grace. Weekly Newsletter: Don't miss out on the latest episodes and updates from The Beautiful Bag! Subscribe to our newsletter to stay connected and receive exclusive content, behind-the-scenes insights, and more. Subscribe Now
LeeAnne greets listeners and wishes them a happy Valentine's Day. She explains that her husband was supposed to join her for the episode but couldn't make it. Instead, she discusses the theme of love and relationships, reflecting on her own journey with her husband. Discussion Highlights: LeeAnne shares the story of how she and her husband met and the challenges they faced blending their families. She discusses how their relationship evolved over the years and how they faced the unexpected challenge of her cancer diagnosis and ostomy surgery together. LeeAnne emphasizes the importance of communication in their relationship, sharing personal anecdotes about how they navigate difficult moments and maintain intimacy. Key Takeaways: Love is about supporting each other through challenges, even when the path seems uncertain. Communication and honesty are essential for maintaining a strong relationship. Intimacy and connection evolve but remain important aspects of a partnership. Closing Remarks: LeeAnne wishes listeners a happy Valentine's Day and previews the next episode featuring guest Jenny Harrison. She encourages listeners to subscribe, leave a review, and share the podcast with others who may benefit from it.
Join your host, LeeAnne Hayden, in this heartening episode of "The Beautiful Bag Podcast," coming to you from New Hampshire. This week, we are honored to have Tori Judson, a remarkable guest who shares her unique and rare journey living with HSAN IV and navigating life as a double ostomate. Diagnosed at 19, Tori's story is one of resilience, courage, and the pursuit of independence. From the challenges of not being able to feel pain, sweat, or temperature, to finding solace and support within the Instagram community, Tori's narrative is both enlightening and inspiring. In This Episode, You'll Discover: Tori's Rare Condition: An in-depth look into HSAN IV, its impact on Tori's life, and the journey to diagnosis. Life as a Double Ostomate: Tori discusses the challenges and triumphs of living with two ostomies, offering a glimpse into her daily life and the adaptations she's made. Finding Community: How social media and public speaking have become platforms for Tori to advocate for ostomy awareness and connect with others. Embracing Independence: Tori shares her excitement about moving into a group home, gaining more independence, and managing her medical care. The Power of Faith: A touching exploration of how faith has been a cornerstone in Tori's life, providing comfort and strength through her hospital stays and self-reflection. Resources Mentioned: HSAN IV Information Ostomy Care Tips Social Media Advocacy for Ostomates Connect with Tori Judson: Instagram: [Tori's Instagram Handle] Subscribe and Review: If you enjoyed this episode, please subscribe to "The Beautiful Bag Podcast" on Apple Podcasts, Spotify, or your favorite podcast platform. Reviews are greatly appreciated and help others discover our community. Connect with LeeAnne Hayden: Instagram: [@LeeAnneHayden] Instagram [@thebeautifulbagpodcast] Next Episode Teaser: Don't miss our next episode, a special heart-to-heart session just in time for Valentine's Day. We'll explore love, relationships, and the unique ways ostomates navigate intimacy. It's an episode filled with warmth, candid stories, and insights that speak straight to the heart with my guest MY HUBBY
Episode Summary: Join LeeAnne Hayden, broadcasting from a snowy New Hampshire loft, for an enlightening solo episode of "The Beautiful Bag Podcast." As we journey through the heart of winter, LeeAnne shares eye-opening statistics that underscore the vastness and diversity of the global ostomy community. With insights gathered from a recent brand awareness consultation, this episode sheds light on the 13.5 million individuals worldwide living with an ostomy, revealing the balance between male and female ostomates and touching on the myriad reasons behind their ostomy surgeries. Tune in for a deep dive into the cultural, healthcare, and individual stories that make up our ostomy community. In This Episode, You'll Learn: Global Ostomy Community: Discover the staggering number of ostomates worldwide and the sense of belonging it brings. Gender Distribution: Uncover the nearly even split between male and female ostomates and what it signifies. Diverse Reasons for Ostomy: From cancer to IBD and accidents, the many paths leading to ostomy surgery. Cultural and Healthcare Variances: How different cultures and healthcare systems impact ostomy care and perception. Advocacy and Awareness: The importance of sharing personal stories and how you can contribute to global awareness. Resources and Support: A guide to international ostomy organizations offering support, education, and advocacy. Resources Mentioned: United Ostomy Associations of America: ostomy.org Ostomy Canada Society: ostomycanada.ca International Ostomy Association: ostomyinternational.org Colostomy UK: colostomyuk.org European Ostomy Association: ostomyeurope.org Australian Council of Stoma Associations: australianstoma.com.au Friends of Ostomates Worldwide: fowusa.org (Note: Replace "#" with the actual URLs) Connect with LeeAnne Hayden: Website: leeannehayden.com Instagram: [@LeeAnneHayden] Twitter: [@LeeAnneHayden] Subscribe and Review: Don't forget to subscribe to "The Beautiful Bag Podcast" on Apple Podcasts, Spotify, or your preferred platform. Your reviews help spread awareness and connect us with more of the ostomy community. Next Episode Teaser: February's episodes will be all about love and relationships, just in time for Valentine's Day. Stay tuned for heartfelt stories, interviews, and LeeAnne's insights on navigating relationships with an ostomy.
In this solo episode of "The Beautiful Bag Podcast," host LeeAnne Hayden shares invaluable insights and personal experiences about traveling with an ostomy. From preparing for your journey, whether by plane, train, or automobile, to practical advice on managing your ostomy supplies, LeeAnne covers it all. Tune in to learn about handling airport security, adjusting to different time zones, and ensuring a comfortable travel experience. Key Topics Discussed: Preparation for Travel: Tips for packing ostomy supplies, including flanges, bags, and emergency items. Air Travel with an Ostomy: Navigating airport security, managing in-flight needs, and TSA guidelines. Personal Stories: LeeAnne's experiences in Honduras and tips learned from other ostomy patients. Hydration and Diet: The importance of staying hydrated during flights and adjusting to time zone changes. Ostomy-Friendly Accommodations: Advice for hotel stays and using disability bathrooms. Resources Mentioned: April Wilson's Ostomy Bag Covers and Travel Kits United Ostomy Associations of America (UOAA) Travel Certificate Link to UOAA website Connect with LeeAnne: Website: LeeAnnehayden.com Instagram: @leeAnnehayden LinkedIn: LeeAnne's LinkedIn Subscribe and Review: Don't forget to subscribe to "The Beautiful Bag Podcast" on your favorite podcast platform. Your reviews and feedback are invaluable and help reach new listeners. Contact Us: Share your own travel tips and stories related to living with an ostomy by emailing LeeAnne@leeannehayden.com Acknowledgments: A special thanks to our community for sharing their experiences and to April Wilson for her amazing ostomy travel kits.
In This Episode: Celebrating 4 Years: Reflecting on the journey of 'The Beautiful Bag Podcast' now entering its fourth year. Gratitude: A heartfelt thank you to listeners for tuning in weekly and sharing in the stories of resilience and inspiration. Surviving and Thriving: Emphasizing the importance of resilience and thriving despite life's obstacles. Building Community: Plans to create an online presence for listeners of the podcast. Personal Milestones: Celebrating LeeAnne's eighth anniversary of surviving cancer and having her stoma. Reflecting on Change: How LeeAnne's life transformed post-cancer, including her career shift and embracing new challenges. The Power of Self-Appreciation: Discussing the importance of loving and appreciating your body, especially after major health changes. Journaling and Meditation: Tips on how to use journaling and meditation to cope with life's challenges and improve mental health. Embracing Wellness: Encouraging listeners to embrace their bodies and wellness, with specific strategies and affirmations. Upcoming Speaking Engagement: LeeAnne shares her upcoming visit to Hollister's manufacturing plant in Virginia. Connect with LeeAnne: Website: LeeAnneHayden.com Instagram: @leeannehayden TikTok: @leeannehayden1 Facebook: @leeannehayden07 Free Resources: Confidence Building Affirmations for Ostomates: Sign up and download affirmations designed for ostomates. Embracing Wellness Guide: A guide to help start the new year with wellness-focused practices. Next Episode Preview: Stay tuned for more inspiring stories and empowering discussions in our next episode. Remember to subscribe, share, and leave a review for 'The Beautiful Bag Podcast'!
In this episode, LeeAnne Hayden engages in a heartfelt conversation with Sara Levitt about her life with an ostomy. Sara shares her personal experiences, including her struggles and triumphs in dealing with Crohn's disease, her journey towards self-acceptance, and how she has become a source of inspiration for others. Episode Highlights: Introduction to the episode and guests Sara's visibility on Instagram and how she captured attention Discussing Sara's lengthy journey with her health condition Sara's experiences with Crohn's disease and her surgeries The challenges of growing up with an ostomy and societal perceptions Sara's journey in overcoming stigma and building self-confidence The significance of community support and sharing experiences Sara's approach to coping with and accepting her ostomy The transition of her ostomy from temporary to permanent Strategies Sara employed for self-love and awareness Pivotal moments in Sara's journey of self-acceptance The impact of sharing her ostomy story on her relationships The role of social media in Sara's journey and its influence on others Sara's advice for listeners facing similar challenges Concluding thoughts and words of encouragement Key Quotes: "My biggest fear became my greatest blessing." - Sara Levitt "Never compare yourself to others; compare yourself to a past version of you." - Sara Levitt "The ostomy gave me my life back." - Sara Levitt Resources Mentioned: Uncover Ostomy by Jessica Grossman Social media platforms for community support (e.g., Instagram, TikTok) Connect with Sara Levitt: Instagram: Sara's Instagram Connect with LeeAnne Hayden: Instagram: LeeAnne's Instagram Closing Remarks: Host LeeAnne Hayden concludes the episode by reflecting on Sara's powerful story, emphasizing the themes of courage, self-love, and the importance of community support. Listen to More Episodes: Available on Apple Podcasts, Spotify, and other podcast platforms. Follow The Beautiful Bag Podcast: Instagram: Podcast Instagram
Introduction LeeAnne welcomes listeners to Episode 120 of the Beautiful Bag Podcast. She acknowledges that it's a special solo episode and mentions that it's Christmas. LeeAnne shares her recent 53rd birthday celebration and expresses gratitude for life. Celebrating Christmas LeeAnne talks about the significance of Christmas and her personal belief in Jesus. She invites listeners to share their own beliefs and stories related to faith or encounters with God. Faith Journey LeeAnne discusses her Catholic upbringing and her evolving faith journey, including her practice of meditation. Profound Meditation Experience LeeAnne describes a transformative meditation experience where she felt guided on a spiritual journey, encountering various images and ultimately experiencing profound peace. Meaning and Reflection LeeAnne reflects on the significance of her meditation experience and the sense of peace it brought her. Reading the Bible LeeAnne fast-forwards a few years to when she decided to read the Bible for the first time, starting with the New Testament, coinciding with her cancer diagnosis. Seeking Forgiveness and Understanding LeeAnne shares her practice of writing a heartfelt letter to God, addressing past mistakes and seeking forgiveness. She emphasizes her belief in God's unconditional love and forgiveness. Surgery and Divine Comfort LeeAnne recounts the day of her surgery and the profound sense of peace and comfort she felt before the procedure. She discusses the positive impact her faith and experiences have had on her life. Purpose and Gratitude LeeAnne expresses gratitude for the Beautiful Bag Podcast and its journey, highlighting the importance of finding purpose in life. Encouragement and Blessings LeeAnne encourages listeners to embrace their unique journeys, seek answers, and find guidance in their faith. She extends warm wishes for a Merry Christmas and shares love with people of all faiths and backgrounds. Conclusion LeeAnne wraps up the episode, hinting at upcoming episodes and leaving listeners with a sense of inspiration and reflection.
Hello, beautiful souls! I'm LeeAnne Hayden, your host, and I'm thrilled to welcome you to another inspiring episode of "The Beautiful Bag Podcast." Whether you're tuning in during your morning coffee or unwinding at night, I want to express my deepest gratitude for being a part of our amazing community. Episode Highlights: A Personal Journey: In this episode, I wanted to share my own journey dealing with blockages and how it has affected my life. For those who might not know my story, let me give you a glimpse into my world. Life Before My Ostomy: At 39 years old, I was deeply immersed in corporate America that turned into a successful run in network marketing. The Unexpected Turn: Despite my commitment to a healthy lifestyle, I started experiencing discomfort and growth in my abdomen, leading to an unexpected diagnosis of a rare sarcoma tumor. The Ostomy Surgery: After two surgeries and the removal of the tumor, I was left with an ostomy, which I've now had for nearly 8 years. This marked a significant change in my life, but it also allowed me to continue pursuing my passions. The Battle with Blockages: Over the years, I've had to navigate the challenges of ostomy life, including dealing with blockages caused by adhesions. I've learned some valuable lessons on how to manage these situations. Tips for Coping: In this episode, I shared tips for dealing with blockages and abdominal discomfort. One surprising remedy is sipping on Coca-Cola, which can help alleviate symptoms. I also emphasized the importance of hydration and listening to your body's signals. Conclusion: Living with an ostomy is a journey filled with ups and downs, but it's essential to stay informed and proactive about our health. Remember, your body is unique, and what works for one person might not work for another. The key is to pay attention to your body's signals, hydrate, and seek medical advice when needed. Thank you for being part of "The Beautiful Bag" community, and if you found this episode helpful, please consider sharing it on social media and tagging me @LeeAnneHayden on Instagram
LeeAnne Hayden, host of "The Beautiful Bag Podcast," welcomes listeners to Episode 118, expressing gratitude for their continual support and encouraging them to share the podcast on social media. Reminder: LeeAnne encourages listeners on Apple Podcasts to leave ratings and reviews to help promote the show. Guest Introduction: Crystal, a double ostomate, sarcoma cancer survivor, and Crohn's disease fighter, shares her compelling journey. The episode focuses on her diagnosis, the challenges she faced, and her resilience in overcoming adversity. Crystal's Journey: Diagnosed in February 2022 after a severe bladder issue, leading to an ER visit and subsequent discovery of her condition. Underwent multiple treatments and surgeries, including chemotherapy and a complex procedure resulting in a colostomy, urostomy, and partial hysterectomy. Emphasizes the importance of self-advocacy in healthcare, as Crystal pushed for a CT scan against initial medical advice. Challenges and Recovery: Discusses the mental and physical challenges post-surgery, including adapting to life with ostomy bags and managing related complications. Shares strategies for coping with mental health issues, including finding comfort in ASMR and Reiki videos. Crystal highlights the value of the ostomy community on social media for support and advice. Life After Surgery: Returning to work and the accommodations made for her comfort and convenience. Discusses her first vacation post-surgery, a cruise, addressing the challenges and adjustments required for traveling with an ostomy. Shares a humorous story about managing her ostomy in an unexpected situation. Final Thoughts: Crystal's advice to listeners: Take time with healing and don't rush the recovery process. LeeAnne discusses her own experiences with sarcoma, emphasizing the rarity and complexity of the condition.
In Episode #117 of "The Beautiful Bag" podcast, host LeeAnne Hayden is joined by Raphaela, a former flight attendant from the UK, to discuss her transformative journey with an ostomy bag. Diagnosed with stage 2 bowel cancer, Raphaela shares her story, from her initial diagnosis and surgery to how she embraced life with a stoma. We delve into the importance of self-advocacy, the impact of cancer on personal and professional life, and how she's now living life to the fullest. Don't miss this inspiring episode about strength, resilience, and finding a new focus in life. Links: Follow LeeAnne Hayden on Facebook, Instagram, Youtube, Tiktok The Beautiful Bag Podcast Instagram | TikTok
This week is a repeat episode - bringing it back with the OG Jearlean Taylor This woman is miraculous! She has had both of her bags since she was 3 years old after a rare form of childhood cancer required her to get a Colostomy as well as a Urostomy. After years of being apprehensive to share her story, she finally realized that she had to talk to others about her journey and raise awareness of what it was to have an Ostomy. Her mom always told her to embrace everything that she had gone through and just share her story. Once she was able to talk more about her Double Ostomy, the world opened up to endless possibilities. She realized that life doesn't have to stop. That you don't have to give up anything. She started speaking more about her journey in church and to others and it opened up the door to modeling, something she never thought she had a passion for, but now it has become a dream of hers. She wants others to know that they can do whatever they want! " I am not defined by my circumstances. You are not defined by your circumstances! You can live your life to the fullest in spite of…. In spite of it all!" Take a listen to today's podcast! You are going to love Jearlean! I just know it!!
In this episode, host LeeAnne Hayden and guest Kristi Tanner discuss Kristi's journey with colon cancer and living with an ostomy. Here are the key discussion points highlighted from the episode: Struggles with Colonoscopy Approval: Kristi turned 50 in March 2020, just when the world was impacted by the COVID-19 pandemic. She didn't think she needed a colonoscopy since colon cancer wasn't in her family history. Kristi began experiencing symptoms such as bleeding, painful bowel movements, and fatigue, which she initially didn't attribute to colon cancer. It took significant effort and advocacy to get approval for a colonoscopy, including calling multiple times to ensure the process moved forward. Diagnosed with Stage 3B Colon Cancer: Kristi eventually received her colonoscopy and was shocked to learn she had colon cancer. The cancer was diagnosed as stage 3B, indicating potential lymph node involvement. They discuss the symptoms Kristi experienced, including rectal bleeding, frequent bowel movements, cramping, and fatigue. Treatment Plan and Challenges: Kristi's treatment plan involved radiation and chemotherapy before surgery. She faced conflicting opinions about whether she would need an ostomy, and there was uncertainty regarding the order of surgery and chemotherapy. Coping with Ostomy: Kristi discusses her initial hesitation and concerns about living with an ostomy. She shares how an ostomy nurse helped her come to terms with it, emphasizing that the ostomy saved her life. She describes how she came to embrace her ostomy, named it Stella, and found humor in the situation. Post-Treatment Activities: Kristi shares how she maintained an active lifestyle after her treatment, working out regularly, even doing a Spartan Race with an ostomy. They highlight the importance of staying active for physical and mental health. Spreading Awareness: Kristi encourages listeners to advocate for themselves and get necessary medical appointments promptly. She emphasizes the need to remove the stigma associated with ostomies and discusses the importance of talking about colon cancer to raise awareness. Kristi's story serves as an inspiring example of resilience, advocacy, and embracing life with an ostomy after facing colon cancer.
In this heartfelt episode of "The Beautiful Bag Podcast," host LeeAnne Hayden welcomes guest Nadia Di Rienzo, who shares her remarkable journey of resilience, living with an ostomy, and beating cancer. Nadia's story is an inspiring testament to the strength of the human spirit and the power of advocacy in the ostomy community. Key Takeaways: Nadia's Health Journey: Nadia's journey begins with her diagnosis of ulcerative colitis (UC) at the tender age of 15. Her story underscores the challenges of navigating chronic illness from a young age. Medical Trials and IBD Management: Nadia talks about her years of managing UC through medical trials, medications, and the ups and downs of the disease. Unexpected Discovery: In the midst of a clinical trial, Nadia experienced symptoms that led to an unexpected revelation—a diagnosis of colorectal cancer. The Surgery: Nadia's journey takes a dramatic turn as she undergoes a total proctocolectomy, resulting in an ileostomy. She discusses the shock and adjustments that came with the surgery. Post-Op Life: Nine months post-surgery, Nadia reflects on the challenges of adjusting to her new life with an ostomy. She shares insights about her sleep patterns and the adjustments she's made. Finding Strength in Exercise: Physical activity, a combination of weights and cardio, has been a crucial part of Nadia's post-op journey. She describes how she works with a physiotherapist to strengthen her abdomen safely. Dietary Adjustments: Nadia discusses the foods she can now enjoy and those she avoids to prevent blockages, including her love for grapefruit and cautiousness about sushi and certain vegetables. Wardrobe Choices: Clothing choices have been a part of her journey, and she details the adjustments she made in her post-op wardrobe. Advocacy and Breaking Stigmas: Nadia emphasizes the importance of sharing her journey on social media, normalizing ostomies, and raising awareness for IBD, colorectal cancer, and living with an ostomy. Facing Fears: Nadia opens up about the fears and anxieties she experienced regarding her children's understanding of her health challenges and how she managed to address them. A Message of Hope: Nadia's story is a testament to not fearing ostomies; she encourages those facing similar challenges to embrace their second chance at life and find positivity in the journey. Connect with Us: Follow Nadia on social media and her blog: @gutsygirldiaries https://gutsygirldiaries.com/ Connect with LeeAnne Hayden on https://www.instagram.com/leeannehayden/ https://leeannehayden.com/
Summary: In this inspiring episode of The Beautiful Bag, LeeAnne sits down with Patrick, also known as the "Ostomy Athlete" on Instagram. Patrick shares his remarkable journey of overcoming challenges and achieving incredible feats in extreme sports and mountaineering while living with an ostomy. His story is a testament to the power of determination and resilience in the face of adversity. Key Takeaways: Patrick's Introduction: Learn about Patrick, the "Ostomy Athlete," and his background. Embracing Extreme Sports: Discover how Patrick got into extreme sports and mountaineering. Living with an Ostomy: Patrick discusses his journey of living with an ostomy and how it has impacted his life. Overcoming Challenges: Hear about the unique challenges Patrick faces while pursuing his passion in extreme environments. Inspiring Others: Patrick's story serves as an inspiration to others in the ostomy community and beyond. Never Lose Hope: Patrick emphasizes the importance of never giving up and maintaining a positive outlook, even in the face of adversity. Connect with Us: Follow Patrick, the "Ostomy Athlete," on Instagram @theostomyathlete. Visit Patrick's website theostomyathlete.com for more information and resources. Connect with LeeAnne on Instagram @leeannehayden. & @thebeautifulbagpodcast & at her website LeeAnnehayden.com
Episode #112: Navigating Life with an Ostomy Bag - Tips and Insights In this week's episode we discuss: Carly's Ostomy Journey: She shares how she came to be in an ostomy Adjusting to Life with an Ostomy: What it took to adjust to having one. Advocacy and Finding Support: How she found and created her support team Advocacy Efforts and Challenges: She shares her advocacy work and how to find yours. Promoting Awareness and Support: How important awareness is. Understanding the Significance of a Stoma: A clear definition of what a stoma is and its significance in an ostomate's life. Advancements in Ostomy Bags: A discussion on the remarkable progress in ostomy bag design, focusing on enhanced comfort and discretion. The Great Bag Cover Debate: The age-old debate about whether to cover ostomy bags with decorative covers. Navigating Skin Issues: Carly's personal journey of dealing with skin issues and the pursuit of the perfect fit for ostomy care. Convexity and Bag Types: The importance of convexity for some ostomates and Carly's transition from deep to soft convexity. Adhesive Remover Spray: The vital role of adhesive remover spray in ensuring gentle bag changes and skin care. Traveling with Ostomy Supplies: Tips for always being prepared while traveling, especially when flying and going through security. Emergency Supplies: The importance of carrying essential supplies in your carry-on luggage and the potential support from hospitals in emergencies. Embracing Acceptance and Self-Love: An empowering message to ostomates, emphasizing the significance of self-acceptance and embracing one's uniqueness as a catalyst for personal growth. This episode of the Beautiful Bag Podcast provides a comprehensive exploration of life with an ostomy bag, offering emotional support and a treasure trove of practical tips. Carly Allen's journey and her remarkable advocacy work serve as a beacon of hope and empowerment, inspiring ostomates worldwide to embrace their own journeys with acceptance and self-love. Connect with us: Hollister Youtube video : LeeAnne on Instagram Carly on Instagram The Beautiful Bag on Instagram
Welcome to another inspiring episode of The Beautiful Bag Podcast with your host, LeeAnne Hayden. In this episode, we have the privilege of sitting down with a remarkable guest, Taylor Mitchell. Taylor's journey through health challenges is anything but typical, and her resilience and determination are truly inspiring. Join us as we delve into Taylor's unique story and learn about her experiences and her life-changing journey. Episode Highlights: LeeAnne introduces her guest, Taylor Mitchell, and shares how she came across Taylor's story on Instagram. Taylor reflects on her health before her journey began, describing herself as a relatively healthy child who rarely visited the doctor. At the age of 20, Taylor experienced a sudden health crisis, including nausea, stomach pain, and exhaustion. She recounts a frightening episode where she temporarily lost her vision, which led her to seek medical attention. Taylor describes her initial misdiagnosis and struggles with doctors who couldn't pinpoint the cause of her symptoms. Over the course of several years, Taylor's health deteriorated, leading her to see specialists for various systems in her body. She was put on multiple medications to manage her symptoms. Taylor discusses the emotional toll her health issues took on her, as well as the impact on her college and work life. Taylor shares her journey of finding the right medical care, including visiting the Mayo Clinic, where she received a diagnosis of pelvic floor dysfunction and chronic constipation. The importance of pelvic floor therapy in Taylor's recovery and how it helped her regain control over her muscles and alleviate incontinence. Taylor's decision to undergo a loop ileostomy surgery after years of suffering from chronic constipation and other symptoms. How Taylor's Instagram journey began as she sought information and resources for managing her ostomy. She realized there was a lack of education and decided to share her experiences with others. The positive impact Taylor's Instagram presence had on people who were struggling with ostomies and gastrointestinal issues. She provided support and advice to those in need. Taylor's reflection on the improvements in her overall health and quality of life following her ileostomy surgery. Her decision to keep her ileostomy due to unresolved rectal issues and her optimism for the future. Taylor's gratitude for the support of her husband, who also has Crohn's disease and an ostomy, and how they've navigated their health journeys together. Join us in applauding Taylor Mitchell's incredible resilience and determination in the face of health challenges. Her story is a testament to the strength of the human spirit and the importance of seeking the right medical care. If you or someone you know is dealing with similar health issues, Taylor's story may provide guidance, hope, and a sense of community. Thank you for tuning in to The Beautiful Bag Podcast. Stay connected for more inspiring stories and conversations. Please remember to subscribe, rate, and review our podcast on Apple Podcasts and share it with friends and family who may benefit from these uplifting and informative discussions. Connect with Us: Follow The Beautiful Bag Podcast on Instagram: @thebeautifulbagpodcast Visit the website:https://leeannehayden.com/ Hollister Incorporated Hydration Video Disclaimer: The content provided in this podcast is for informational purposes only and should not be considered a substitute for professional medical advice. Always consult with your healthcare provider for personalized guidance and treatment options.
In this episode of "The Beautiful Bag Podcast," LeeAnne is joined by a special guest, Tina, known as "Own Your Crohn's" on Instagram. Tina shares her inspiring and deeply personal journey of living with Crohn's disease and undergoing an ostomy procedure. Her story is one of resilience, breaking cultural stigmas, and finding strength in adversity. Key Takeaways: Tina's Crohn's Journey: Tina was diagnosed with ulcerative colitis over 17 years ago, and her disease progressed from mild to severe. She faced challenges with limited treatment options and cultural stigma. Biological Therapies: Tina tried various advanced therapies and biologics, but they did not provide relief, leading her to consider surgery. Facing Surgery: At the age of 24, Tina was confronted with the prospect of surgery. She underwent a J pouch surgery, but it didn't work out due to the development of complications related to Crohn's disease. Cultural Stigma: Tina highlights the cultural taboos and stigma associated with ostomies in certain communities. She shares how these stigmas can affect marriage, temple visits, and daily life. Mental Health Challenges: Tina discusses the mental and emotional toll of living with an ostomy and how societal pressures can impact one's self-esteem and mental well-being. Overcoming Stigmas: Tina emphasizes the importance of breaking through these stigmas and advocating for acceptance and inclusion in all communities, regardless of health conditions. Sexual Health: The podcast delves into the topic of how ostomies and fistulas can affect sexual health. Tina and LeeAnne share their personal experiences and offer insights into maintaining a fulfilling sex life. Quality of Life with an Ostomy: Tina shares how her ostomy has improved her quality of life, allowing her to enjoy activities and experiences she couldn't before. Marriage and Acceptance: Tina discusses the complexities of marriage in the context of chronic illness and how open communication is essential for understanding and acceptance within relationships. Tina's journey is a testament to the power of resilience and self-acceptance. Despite facing numerous challenges, she has embraced her ostomy and become an advocate for breaking the taboos surrounding ostomies and chronic illnesses. Connect with Us: Link to Hollister Video - How to Manage Emotions Follow "The Beautiful Bag Podcast" on Instagram @thebeautifulbagpodcast. Connect with Tina on Instagram @ownyourcrohns. Visit Tina's blog and advocacy work for more information on living with Crohn's disease and ostomies.
Introduction: In this episode, host LeeAnne Hayden is joined by special guest Dr. John Heryer, a colorectal surgeon and an ostomate. Dr. Heryer shares his inspiring journey and insights into living with an ostomy, as well as discussing the topic of hernias and their prevention. Discussion Highlights: Dr. John Heryer's background as a colorectal surgeon and an ostomate. The importance of embracing your new life and appreciating good health. The challenges and complications related to hernias in ostomates. Strategies for preventing hernias, including avoiding abdominal straining and strengthening the abdominal core. The significance of pelvic tilts and core-strengthening exercises for post-surgery recovery. The unique perspective of a surgeon turned ostomate in understanding the patient experience. The use of support belts for added security and comfort. Dr. Heryer's personal experience with prednisone and his advice for tapering it gradually to mitigate side effects. The value of seeking objective opinions and advice from healthcare professionals. Life after ostomy surgery and the pursuit of strength and fitness goals. Dr. Heryer's transition to options trading and the flexibility it offers. Connecting with Dr. Heryer via email for further questions and potential presentations. Conclusion: Dr. John Heryer's remarkable journey from being a colorectal surgeon to an ostomate highlights the importance of embracing life's changes and appreciating good health. This episode provides valuable insights into preventing hernias, managing prednisone tapering, and seeking objective advice. Dr. Heryer's positive outlook on life post-surgery serves as an inspiration to all ostomates. For more information or to contact Dr. John Heryer, please email him at John.Heryer@gmail.com. Connect with LeeAnne at HERE
In this week's Episode I speak with Amalia (The Ostomy Dietitian) Amalia's Early Health Struggles Amalia discusses her lifelong GI problems, from childhood to college, including vomiting, reflux, and dietary restrictions. She mentions her appendectomy during her college years. The Onset of Severe GI Symptoms Amalia's journey into adulthood is marked by the escalation of GI symptoms. She talks about her early career as a dietitian in a high-stress environment and the daily struggles she faced with pain, mucus, blood, and frequent bowel movements. The challenge of advocating for herself during medical appointments is highlighted. Misdiagnoses and Continued Struggles Amalia's frustration with repeated misdiagnoses and lack of effective treatment is shared. The doctors' focus on her rectum is mentioned, despite escalating symptoms. She describes living with prolapse, fissures, and fistulas, all abnormal for pelvic floor issues. The couple's move to Canada and her experiences with the healthcare system there are discussed. The Turning Point and the Decision to Act Amalia's decision to seek specialized care in the U.S. after facing delays in Canada is explained. She emphasizes the importance of taking control of her health and discusses her husband's initial shock at the severity of her condition. The toll of her condition on her mental and physical health is highlighted. Finding Hope Through Surgery Amalia's journey to the Cleveland Clinic in Florida and her encounter with a renowned colorectal surgeon are discussed. Her decision to undergo a temporary ileostomy is explained, despite having no formal diagnosis. The relief she experienced after surgery and the end of eight years of pain are highlighted. Amelia reflects on the resilience of her personality. The Post-Surgery Recovery and Challenges Amalia shares her recovery experience, including a month-long hospital stay. The adjustment to life with an ileostomy is discussed. Unexpected abdominal pain after surgery and its connection to her first-ever period at age 29 are mentioned. The importance of her medical team's support during the recovery period is emphasized. Continuing the Journey Amalia's determination to start a family and her pursuit of this goal are discussed, highlighting her husband's supportive role. The decision to have her colon removed and her path to healing and starting a family are explored. The Surprising Second Pregnancy Amalia shares her remarkable experience of becoming pregnant naturally after deciding to pursue surrogacy. The challenges of managing pregnancy with an ostomy and diversion colitis are discussed. The Struggles Continue Amalia discusses the difficulties she faced with her second pregnancy, including blockages and preterm birth. The emotional toll of being separated from her newborn son, who needed NICU care, is explored. Her determination to continue breastfeeding despite the challenges is mentioned. Unexpected Complications and Another Surgery Amalia reveals that she faced unexpected issues with her ostomy, leading to the need for revision surgery. The emotional and physical toll of undergoing surgery with a young baby at home is discussed. The importance of resilience in the face of ongoing health challenges is emphasized. Wrapping Up and Looking to the Future LeeAnne and Amalia reflect on the incredible journey Amelia has been on, from ostomy surgery to motherhood. Amelia shares her perspective on the unique gifts and challenges of her experience. Connect with Amalia on Instagram Connect with LeeAnne on Instagram
Intro (00:06-00:19): LeeAnne warmly welcomes the audience to "The Beautiful Bag Podcast." The special guest, Allison, is introduced, and the host shares their exciting meeting at the UOAA annual convention. Reflecting on the thrill of meeting individuals in person after connecting with them on social media. Introduction to Allison's Story (00:19-01:55): Allison's background in working at the American Cancer Society and her journey with colorectal cancer. Being diagnosed with Crohn's disease at the age of 12 and experiencing remission for several years. The sudden onset of unusual symptoms leading to a diagnosis of colorectal cancer. Emphasis on the importance of regular check-ups and colonoscopies. Describing the shock and challenges of facing a cancer diagnosis and the need for prompt medical attention. The Journey Begins (01:55-02:33): Allison's life before cancer and her work in cancer research in Houston, Texas. Receiving a clean bill of health during a previous colonoscopy. The gradual onset of concerning symptoms leading up to the cancer diagnosis. Symptoms and Diagnosis (02:33-05:46): Allison's experience with changing bowel habits, weight loss, fatigue, and abdominal pain. The discovery of a blockage and initial uncertainty about the diagnosis. The shocking moment when Allison was diagnosed with colorectal cancer. Seeking multiple surgical opinions and ultimately choosing MD Anderson for treatment. The importance of personalized care and finding the right medical team. Quality of Life with an Ostomy (05:46-07:53): Discussion about the misconceptions and fears surrounding ostomies. Allison's initial hesitation and her decision to opt for a J-pouch after surgery. Reflecting on how she would make different choices if she knew then what she knows now. The importance of education and dispelling myths about life with an ostomy. Overcoming Preconceived Notions (07:53-10:50): Addressing common questions people have about living with an ostomy, including eating normal food, wearing regular clothes, and concerns about relationships. Alison's personal experiences with dating and relationships after having an ostomy. The role of the ostomy community in providing support, sharing stories, and breaking stigmas. The positive response to Allison's social media posts about her ostomy. Embracing and Naming the Ostomy (10:50-13:18): Discussing the significance of naming the ostomy, with Allison sharing the name "Phil." Allison's experience of wearing a bikini for the first time and embracing her scars and ostomy. The power of community and connecting with like-minded individuals who understand. The growth and support Allison received through social media. Advocacy and Community Engagement (13:18-15:47): Allison's advocacy work, including volunteering with cancer support programs and ostomy associations. The importance of mentoring and supporting individuals considering or living with an ostomy. The impact of sharing personal stories and experiences to help others. Encouraging people to live life to the fullest and not let fear of an ostomy hold them back. The Top Three Questions (15:47-End): The most common questions Allison receives about ostomies: eating normal food, wearing regular clothes, and concerns about relationships. The role of education and dispelling misconceptions about life with an ostomy. The importance of living life fully and not letting an ostomy prevent someone from enjoying life. Podcast Outro: The host expresses gratitude to Allison for sharing her inspiring story and valuable insights. Encourages listeners to connect with Allison on social media and stay tuned for more episodes of "The Beautiful Bag Podcast." Resource Links: Allison's TikTok Allison's Instagram Closing Message from Allison: "An ostomy is not the end of your life; it is just the beginning of your life."
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