American journalist and author
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It's easier to be shocked by the story The Retrievals podcast reports and moves on but extremely important to reflect on why it happened in order to prevent history repeating itself (again). For months, a nurse at a Fertility Center in the United States replaced the pain reliever fentanyl with normal saline, taking the fentenyl for her own use, but left women undergoing egg retrievals without pain relief. Patients in pain for a procedure is horrible enough, but it's extremely disturbing that the women who tried to report and question what happened felt like their concerns were ignored. In this episode of Baby or Bust, Dr. Lora Shahine takes us through what an egg retrieval process should be like and is like, the majority of the time. Dr. Shahine also explores the history of women and the medical community and why women so often have to advocate for themselves to get even a minimum of care. She leaves with tips on how to advocate for yourself so you receive the attention and care you deserve. Listen and share! Take a moment to follow the show and leave a review wherever you listen to podcasts! What you'll hear in this episode: [00:00] Intro to Episode: The Gender Bias in Medicine [00:37] Intro to Baby or Bust and thank to our sponsor Seattle Sperm Bank [01:12] Intro to the Retrievals Podcast by the New York Times and Serial Network: The Story [04:38] What is pain control supposed to be like for a retrieval? [04:43] Fentanyl: What is it and What does it do? [05:12] Midazolam (Versed): What is it and What does it do? [10:22] What pain control is like at my clinic PNWF in Seattle [10:40] Propofol: What is it and Why is it different? [12:15] Dr. Shahine describes her own experience with her egg retrieval [12:52] Why did this happen? Why is it common for women to feel dismissed in medicine? [14:43] The gender bias in medicine – pain, endometriosis, and more [16:15] The book Doing Harm by Maya Dusenbery [17:02] The knowledge gap – women excluded from medical trials, lack of teaching women's health in medical training, lack of investment in research into diseases that mainly impact women [18:30] The trust gap: doctors not trusting women's description of symptoms [19:25] What can be done to change this? [20:10] Learning how to advocate for YOUR care: Tips for you from Dr. Shahine [22:31] Recap [23:46] Fertility Story of the Week: The patient that told Dr. Shahine about the Retrievals Podcast [25:53] Resources and thank you Resources mentioned: Retrievals article in New York Times The Retrievals podcast on Apple Stay Up to Date in Fertility News and Events: Weekly Newsletter Follow @drlorashahine Instagram | YouTube | Tiktok | Her Books
Are you struggling with fatigue, weight gain, low libido, brain fog, irregular cycles, PMS, mood swings, gut or sleep issues? Well then, I can't effing WAIT for you to meet Dr. Beth Westie! ❤️
Thank you for listening to The Chemical Sensitivity Podcast!New episodes twice a month. Subscribe on Apple Podcasts, Spotify, Google Podcasts, or wherever you get your podcasts to never miss one.And follow on social media for all updates.This episode features a conversation with Maya Dusenbery. Maya is the author of the extraordinary book, "Doing Harm: The Truth About How Bad Medicine and Lazy Science Leave Women Dismissed, Misdiagnosed, and Sick." Maya talks about why so many women with chronic illnesses, including MCS, are often dismissed and misdiagnosed. And how women's knowledge is a source of power. I hope you enjoy the conversation.If there's someone you would like to hear interviewed on the podcast or a topic you would like us to explore, please let me know. Email: info@chemicalsensitivitypodcast.org. Thanks again for listening!Support the show
If You Want To Learn How To Better Advocate For Your Health, You Should: If possible, seek out a physician that you feel listens to your concerns Keep a symptoms diary to present clear evidence to your doctor Find a trusted friend who can support you on your diagnosis journey Do your own research to empower yourself with the knowledge you need The sad truth is that most women know what it is like to have their symptoms be dismissed or downplayed by our medical system. The history of women being gaslit in medicine goes back centuries, which is why it is important to understand the history of bias in the medical field so that we can pave the way for policy changes today. What It Means to Be an Unwell Woman with Dr. Elinor Cleghorn Dr. Elinor Cleghorn has a background in feminist culture and history, a Ph.D. in humanities and cultural studies, and is the author of the new book Unwell Women. She is passionate about sharing her experience of chronic illness, debunking the myths and history surrounding the gaslighting of women, racism, and misogyny in the medical field. Dr. Cleghorn exposes how the system has been historically rigged against women and empowers others to advocate for their health and bodies. A Historically Discriminatory System The idea that women exaggerate their pain or are unreliable when speaking about their bodies has a long history. These prejudices are still seen today in the language used by practitioners and the dismissive attitudes embedded into the medical field in general. This ancient sexism, racism, and misogyny in the medical system will only be corrected when research and funding are allocated to understanding the more complex issues of gender and chronic disease. While this kind of content can be challenging to hear, it is only by preparing ourselves with the knowledge necessary to advocate for ourselves and our mothers, sisters, and daughters that we can create much-needed change. Becoming Your Own Advocate Although the system may be rigged against us, the eternal truth is that nobody understands your body better than you do. You have the right to search for the answers and have ownership over your health because, in the end, that is what matters the most. Everybody has the right to be respected, spoken to as they want to be spoken to, and have things explained to them. We all need to be alerted and empowered to stand up for these rights so that we can advocate for our bodies and health. If you have been made to feel like you are not reliable, that your pain is not real, or discriminated against, this episode will empower you with the information you need to become your own advocate and get the answers you deserve. What are your experiences as a woman seeking answers in today's modern medical system? Share your thoughts with me in the comments section of the episode page. Quotes: “I knew that I was unwell, and I wanted to know why, but I really wasn't getting any validation back from any doctors, so I did start to internalize this a bit.” (11:21) “These sort of myths really stick, and how I feel is that these sort of ideas, which were often associated with perceptions or prejudices about women's lives, they've often obscured or got in the way of knowledge progressing.” (16:44) “This is not just a medical bias; this is a social and cultural bias that has been proven in other studies that more feminized was of speaking, verbal and nonverbal communication, tends to be either underestimated or undervalued or distrusted.” (21:16) “These awful eugenic, biologically racist assumptions do still exist as unconscious and implicit biases. So I think before anything happens in the medical curricular, we really need to address this. Not just from anti-bias training, but from facing up to the histories that medicine has been complicit in as it has developed over its centuries and decades.” (29:56) “It is your body. And you really are the best narrator and the best interpreter of what you are going through no matter what anybody else makes you feel, your intuition and your trust in your own body and your feelings are correct.” (31:43) In This Episode Why it takes so long to diagnose women's autoimmune disease and how that impacts our health (9:50) How the dismissive attitudes towards women's pain have been embedded into our modern medical system (14:10) Why feminized ways of talking about pain in the body have rigged the system against us (21:17) The role of racism and misogyny when it comes to dismissing symptoms and providing treatment (25:34) How to advocate for yourself and set yourself up for success when dealing with symptoms today (31:15) Resources Mentioned: Use Promo Code drmariza for 15% Off Your Organifi Order Here Unwell Women by Dr. Elinor Cleghorn Follow Dr. Elinor Cleghorn on Instagram | Twitter Doing Harm by Maya Dusenbery Other Resources: Check out the full show notes page Keep up with everything Dr. Mariza Follow Dr. Mariza on Facebook | Instagram | Twitter | Youtube Podcast production & marketing support by the team at Counterweight Creative Related Episodes: Essentially You Episode #319: Red Flags: 10 Ways We Gaslight Women in Medicine Today
As women, we visit the doctor seeking answers, pain relief, and support. Instead, we end up fighting stereotypes. Healthcare providers say our symptoms aren't real. And we are treated as if we are overreacting. Women are more likely to have their pain minimized, their symptoms dismissed, and tests refused. This mishandling of complaints leads to delays in diagnosis and treatment, causing more pain and health problems. Learning how to advocate for yourself is the best thing you can do to make sure you are heard and supported. Tune in today to hear... Examples of medical gaslighting How the history of research contributed to this issue The impact on patients And more! Mentioned in this episode: Get your PaleoValley beef sticks here (get 15% off with code drmariza) Is Your Doctor Gaslighting You? Here's What to Do Doing Harm by Maya Dusenbery Related Resources: Essentially You episode: #120 Is Your Doctor Using The Correct Hormone Test...Or Not? With Dr. Carrie Jones Essentially You episode: #197 What Labs Do I Need to Request for My Hormones? The 6 Root Causes Of Autoimmunity The Truth Behind Your Endometriosis Diagnosis Top 10 Self-Care Rituals for Today's Woman
In this episode, Adrienne interviews journalist Maya Dusenbery, author of the book Doing Harm: The Truth About How Bad Medicine and Lazy Science Leave Women Dismissed, Misdiagnosed, and Sick. When Dusenbery was unexpectedly diagnosed with rheumatoid arthritis, it opened her eyes to the ways that women are often mistreated in medicine. She wanted to learn more about the gender bias in medicine, and so dove into research. She interviewed doctors, researchers, and patients to learn more about how and why women so often suffer with chronic conditions for years without a diagnosis or treatment. Listen to learn the startling statistics about how chronic disease disproportionately affects women, why the gender bias in research emerged, what medical gaslighting is and why it happens, what women can do to protect themselves against sexism in medicine, and much more. Join the conversation at the written version of the article here: https://getwellbe.com/changemakers/medical-gaslighting-maya-dusenbery/
Maya Dusenbery was our guest on the KAXE/KBXE Morning Show for our Strong Women Series made possible by the Arts and Cultural Heritage Fund. We talked about gender bias in medicine. You can watch a facebook live event through the Brainerd Public Library's Friends of the Library Brown Bag Lunch series on Monday February 1st at noon. Free and open to the public. Maya Dusenbery is a journalist, editor, and author of the book Doing Harm: The Truth About How Bad Medicine and Lazy Science Leave Women Dismissed, Misdiagnosed, and Sick , which the New York Times Book Review called "well researched [and] wonderfully truculent." A New York Times Editors’ Choice pick, Doing Harm was named one of the best books of 2018 by NPR and Library Journal . It was the winner of the 2019 Minnesota Book Award for general nonfiction. Maya has been interviewed about gender bias in medicine on NPR’s Fresh Air , Good Morning America , and countless radio shows and podcasts. She regularly gives talks on the
When author Maya Dusenbery started to experience pain after a viral infection, she was introduced to a medical system that mostly marginalizes women and dismisses diseases that predominantly affect women. This of course will come as no surprise to any female that has a disease the medical system does not readily recognize. If that disease doesn’t have a biomarker yet, doctors will often attribute women’s physical symptoms as psychological in origin. This is known as medical gaslighting and its origins can be traced back to the cocaine fueled thinking of Sigmund Freud and beyond. In spite of medicine and research claiming to be self correcting institutions, Maya lays out the problems embedded in research, diagnosis and treatment and identifies 2 cracks - or what Maya calls ‘gaps’ - in the health care system: A knowledge gap and a trust gap, and the feedback loop that sustains them. In this interview, we unpack Maya’s experience with the health care system and why it prompted her to take a deep dive into exposing the systemic gaps in women’s access to appropriate research data and treatment protocols. Connect with Maya Dusenbery https://www.mayadusenbery.com/ https://twitter.com/mayadusenbery Buy Maya’s book on Amazon Be a podcast patron Support Medical Error Interviews on Patreon by becoming a Patron for $2 / month for audio versions. Premium Patrons get access to video versions of podcasts for $5 / month. Be my Guest I am always looking for guests to share their medical error experiences so we help bring awareness and make patients safer. If you are a survivor, a victim’s surviving family member, a health care worker, advocate, researcher or policy maker and you would like to share your experiences, please send me an email with a brief description: RemediesPodcast@gmail.com Need a Counsellor? Like me, many of my clients at Remedies Counseling have experienced the often devastating effects of medical error. If you need a counsellor for your experience with medical error, or living with a chronic illness(es), I offer online video counseling appointments. **For my health and life balance, I limit my number of counseling clients.** Email me to learn more or book an appointment: RemediesOnlineCounseling@gmail.com Scott Simpson: Counsellor + Patient Advocate + (former) Triathlete I am a counsellor, patient advocate, and - before I became sick and disabled - a passionate triathlete. Work hard. Train hard. Rest hard. I have been living with HIV since 1998. I was the first person living with HIV to compete at the triathlon world championships. Thanks to research and access to medications, HIV is not a problem in my life. I have been living with ME (myalgic encephalomyelitis) since 2012, and thanks in part to medical error, it is a big problem in my life. Counseling / Research I first became aware of the ubiquitousness of medical error during a decade of community based research working with the HIV Prevention Lab at Ryerson University, where I co-authored two research papers on a counseling intervention for people living with HIV, here and here. Patient participants would often report varying degrees of medical neglect, error and harms as part of their counseling sessions. Patient Advocacy I am co-founder of the ME patient advocacy non-profit Millions Missing Canada, and on the Executive Committee of the Interdisciplinary Canadian Collaborative Myalgic Encephalomyelitis Research Network. I am also a patient advisor for Health Quality Ontario’s Patient and Family Advisory Council, and member of Patients for Patient Safety Canada. Medical Error Interviews podcast and vidcast emerged to give voice to victims, witnesses and participants in this hidden epidemic so we can create change toward a safer health care system. My golden retriever Gladys is a constant source of love and joy. I hope to be well enough again one day to race triathlons again. Or even shovel the snow off the sidewalk.
This week I talk about disparities women face in health care, and go a step further to talk about how women of color and trans people are affected on an even more significant level. - “Ask Me About My Uterus: A Quest to Make Doctors Believe in Women’s Pain” by Abby Norman. - “Doing Harm: The Truth About How Bad Medicine and Lazy Science Leave Women Dismissed, Misdiagnosed, and Sick” by Maya Dusenbery. - Information gathered from: https://www.npr.org/sections/health-shots/2017/11/21/564817975/health-care-system-fails-many-transgender-americans ; https://www.americanbar.org/groups/crsj/publications/human_rights_magazine_home/the-state-of-healthcare-in-the-united-states/racial-disparities-in-health-care/ ; https://www.nhpr.org/post/when-why-women-people-color-face-lower-quality-healthcare-worse-health-outcomes#stream/0 ; https://www.kff.org/wp-content/uploads/2013/01/racial-and-ethnic-disparities-in-women-s-health-coverage-and-access-to-care.pdf ; https://www.usnews.com/news/the-report/articles/2018-04-20/why-women-struggle-to-get-doctors-to-believe-them ; https://www.nytimes.com/2018/03/19/books/review/abby-norman-ask-me-about-my-uterus.html. - Follow on FB & IG @vaginastories_pod. - Join our Facebook support & connection group “If My V Could Talk Support” for connection with like-minded people & stay tuned for the giveaway. - Subscribe, rate, & SHARE! - Always remember, If My Vagina Could Talk, this is what it would say! --- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
Today we're sharing an episode from another podcast we love, Call Your Girlfriend. CYG is a podcast for long-distance besties about feminism, politics, health, pop culture, and friendship. This episode features an interview with author Maya Dusenbery and explores the research behind why medical institutions frequently dismiss and underestimate chronic pain and patients' accounts of their own symptoms.
Between the latest online fads and the crazy media headlines, it’s easier than ever to get confused about your health. If you want to make better decisions about your health today so you can feel better and live longer, you’ve come to the right place. Have you heard that horse urine is an effective hormonal treatment? Or that a commonly recommended solution for endometriosis is getting pregnant? Did you know that it has only been in the last 30 years that women have received equal federal healthcare research funding to men? Too much of the information and too many of the findings we have about women’s health aren’t really about women at all. There is so much waiting to be understood about women’s health, and today we’re going to bust some of the most common, and potentially dangerous myths about women’s health. I’m joined today by Dr. Mariza Snyder, author, speaker and advocate for women in today’s imbalanced medical society. She begins by clearly highlighting some of the biases against women in the healthcare system, from research and testing to misdiagnoses and incorrect treatments. She explains the history and misunderstandings resulting from the big business of women’s health services and also enthusiastically shares the importance of functional nutrition, lifestyle choices, and advocating for yourself as a woman in today’s imbalanced healthcare system. If you’ve ever been told that your symptoms are all in your head or you’re just not sure which steps to take next to solve the mystery of your health, I know you’ll be encouraged by my conversation with Dr. Mariza Snyder. Key Takeaways: [1:10] Today’s topic is women’s healthcare — the history, the imbalance, and the future of women’s health. [2:23] Dr. C introduces Dr. Mariza Snyder, who shares her experience of misdiagnosis for chronic fatigue and hormone imbalance that led her to her life’s work. [7:23] Understanding the possibility of dependency on prescriptions that may or may not relieve symptoms. [8:10] The essential role of self care and proper supplementation for your physical and mental health, and how to avoid relapse into self sabotaging actions. [11:19] The 45-minute bedtime routine, including her favorite essential oils for resetting and relaxing, that Dr. Snyder refuses to sacrifice under any circumstances. [14:10] Understanding the reasons behind the ineffective “add women and stir” NIA funded research approach that has been followed in the healthcare system for far too long. [21:48] The blame that the womb has taken for the fate of women in the healthcare system beginning in the 5th century and the 1940s transition from hysteria to hormone replacement therapy. [25:40] Male vs. female reporting in the doctor’s office and the results that can have on effective healthcare, including harmful hormone treatments that have been overprescribed in the past. [34:35] Busting medical myths around endometriosis — its ‘causes’ and ‘solutions’ and the greater understanding that we finally have of it today. [41:28] Defining endometriosis, its symptoms and the correlation with patients who also suffer with thyroid disease. [47:12] The readily dismissed symptoms that women are too often misdiagnosed for, including chronic pain, autoimmune disease, cardiovascular disease, and hormonal-driven changes. [50:56] Dr. Snyder’s call to women to bravely advocate for their own care and specific actions and questions you can ask of your healthcare provider. [55:01] You can avoid inconsistent testing results by considering your monthly menstrual cycle when scheduling tests. [59:45] Do you have a topic you’d like me to cover? Contact me on Facebook or Instagram using #medicalmyths. To learn more: www.drchristianson.com Dr. Christianson on Instagram Dr. Christianson on Facebook Comprehensive Thyroid Care Telemedicine Dr. Mariza Snyder The Essential Oils Hormone Solution: Reclaim Your Energy and Focus and Lose Weight Naturally by Dr. Mariza Snyder Doing Harm: The Truth About How Bad Medicine and Lazy Science Leave Women Dismissed, Misdiagnosed, and Sick by Maya Dusenbery
On this caregiver radio program Pamela D. Wilson, caregiving expert shares tips for family caregivers who say “Caring for My Elderly Mother is Killing Me.” Journalist, Maya Dusenbery, talks about bias in women's health care and the challenge of getting the right diagnosis.
In conjunction with this podcast, Blackfishing the IUD is a collaboratively-written memoir by novelist, Caren Beilin, about reproductive health and the IUD, gendered illness, medical gaslighting, and activism in the chronic illness community.Head to http://wolfmanhomerepair.com/blackfishing to get more info about the book and project, and to order a copy!Shownotes:Doing HarmFeministing BlogEgyptian IUD and Rheumatoid Arthritis StudyAbuse of Time by VVD WNDWS (Intro Song)Matt CarneyAccessibility Transcript
On this episode of en(gender)ed, our guests are Bethany Johnson and Maggie Quinlan, co-authors of the book, You're Doing it Wrong! Mothering, Media and Medical Expertise, which investigates the storied history of expertise around mothering in society and in the media. As an Associate Professor of Communications at UNC Charlotte, Maggie work explores how communication creates, resists and transforms knowledge about bodies. Bethany is an instructor in the Department of History and her research focuses on American medical and gender history. Our discussion today will deep dive into their most recent joint work, You're Doing it Wrong! and its analysis of the history of mothering, mothering experts, and the implications social media has had on the experience of mothering in this country and the issues of equality it raises for mothers to receive equitable care. During our conversation, Bethany and Maggie and I referenced the following resources: Episode 9 with Joan Meier and her recent final publication of her research on how courts view claims of abuse Robin Jensen's Infertility: Tracing the History of a Transformative Term The work of Mary Putnam Jacobi on women's health The work of Dr. Matrika Johnson on research and work in reproductive endocrinology and infertility in the African-American community Teri's reference to the National Advocates for Pregnant Women The feminist group Heterdoxy who brought birthing into hospitals Maya Dusenbery's book, Doing Harm Serena Williams' near death experience after giving birth If you'd like to purchase Bethany and Maggie's book, click on this link for a flyer offering a 30% discount. --- Thanks for tuning in to the en(gender)ed podcast! Be sure to check out our en(gender)ed site and follow our blog on Medium. Consider donating because your support is what makes this work sustainable. Please also connect with us on Twitter, Instagram and Facebook. Don't forget to subscribe to the show!
Are patients consumers? Defining the terms patient and consumer will get us started here and also provide the insight and common understanding that we need to tackle this seemingly elusive question. Patient (adjective): able to accept or tolerate delays, problems, or suffering without becoming annoyed or anxious. Synonyms: forbearing, uncomplaining, tolerant, long-suffering, resigned, and stoical. Definition two (noun): a person receiving or registered to receive medical treatment. I’ll get to the number one adjective definition of patient soon enough—don’t you worry—but to start, let’s consider number two (noun) for about T minus 5 seconds. You’ll notice “a person receiving or registered to receive medical treatment” could mean pretty much any adult or child human with an appointment at any health care facility. Moving on. Consumer (noun): a person who purchases goods and services for personal use; a person or thing that eats or uses something. Similar to the term patient, a consumer could be anyone anywhere at any time who purchases anything or uses anything. The definition doesn’t separate informed consumers from ill-informed consumers and then postulate that ill-informed consumers are actually not consumers, and I can see why: This path would get dark really fast. If we’re looking at the literal answer here and I wanted to be obtuse, I could correctly say that the literal answer to the question, “Are patients consumers?” is yes. Consumers are people who use something, and they pay for something. Patients use health care and sometimes they pay for it, so literally patients are consumers as per Webster’s dictionary definitions. But let’s look at the not-literal answer. When not hosting the show, Stacey is co-president of Aventria Health Group, a marketing agency and consultancy. Aventria specializes in helping pharmaceutical, employer, pharmacy, and health system clients improve patient outcomes by creating and leveraging collaborations with other health care organizations. For more than 20 years, Stacey has innovated better-coordinated health solutions benefiting all stakeholders and, most of all, the patient. 02:32 Why patients are not consumers. 02:41 A better way to define consumer. 03:15 When “patients are not consumers” is even more correct. 03:40 Where the definition of consumer starts to devolve or evolve. 04:17 The definition of consumer according to an article by The Hastings Center.05:01 The “consumer metaphor” and eroding physician professionalism. 05:26 The problematic points at demonizing the consumer patient. 06:36 EP205 with Maya Dusenbery.08:59 How “patient” may not be the best way to define our goals for the patient experience. 10:34 “It is tough to be a consumer when you don’t have the information that you need to be one.” 13:08 The paradox: Patients are not, and also are, consumers. 13:31 “The question itself is the answer.” 13:41 “Patients … are basically incapable of achieving health care consumer status in this country today.” 13:57 Things to consider for those who don’t think patients should try to be consumers. 15:21 “If you’re a patient … do the best you can to be a good health care consumer.” 15:59 Tips for being a good health care consumer. 16:30 Articles on how to be a good consumer online.17:00 “It pays to be suspicious.” 17:15 Get second, third, and fourth opinions from subspecialists. Why are #patients not #consumers? Stacey Richter of @AventriaHG explains. #healthcare #healthcarepodcast #podcast #digitalhealth #healthcareconsumer What’s a better way to define #consumer? Stacey Richter of @AventriaHG explains. #healthcare #healthcarepodcast #podcast #digitalhealth #healthcareconsumer When are #patients not #consumers? Stacey Richter of @AventriaHG explains. #healthcare #healthcarepodcast #podcast #digitalhealth #healthcareconsumer Where does the definition of #consumer start to evolve and devolve? Stacey Richter of @AventriaHG explains. #healthcare #healthcarepodcast #podcast #digitalhealth #healthcareconsumer How #consumerism in health care isn’t eroding physician professionalism. Stacey Richter of @AventriaHG explains. #healthcare #healthcarepodcast #podcast #digitalhealth #healthcareconsumer How #patient may not be the best way to define our goals for the #patientexperience. Stacey Richter of @AventriaHG explains. #healthcare #healthcarepodcast #podcast #digitalhealth #healthcareconsumer “It is tough to be a consumer when you don’t have the information that you need to be one.” Stacey Richter of @AventriaHG explains. #healthcare #healthcarepodcast #podcast #digitalhealth #healthcareconsumer “Patients … are basically incapable of achieving health care consumer status in this country today.” Stacey Richter of @AventriaHG explains. #healthcare #healthcarepodcast #podcast #digitalhealth #healthcareconsumer “If you’re a patient … do the best you can to be a good health care consumer.” Stacey Richter of @AventriaHG explains. #healthcare #healthcarepodcast #podcast #digitalhealth #healthcareconsumer
What we're talking about in this episode! The importance of bridging the knowledge and trust gap towards women in medicine Steps to change and shape the way that women are treated in the medical system Why you should be giving your doctor diagnosis feedback and holding them accountable How to start voting for the type of healthcare that you want with your buying power Ways you can increase the demand for female medical education and systemic equality Episode Summary Chances are at one point or another you have been dismissed, misdiagnosed or not taken seriously when voicing health concerns to your medical practitioner. This is a feeling women know far too often, and it can have a substantial impact on your health and your ability to heal yourself. Maya Dusenbery saw countless women suffering because of the medical communities lack of knowledge, or lack of trust when it came to women’s diseases, and decided to do something about it. Doing Harm: The Truth About How Bad Medicine Leave Women Dismissed, Misdiagnosed and Sick is the book you need to stop being disregarded and start feeling better, and Maya is here to share her wealth of knowledge with us today. Maya is exposing the neglected conditions of women's issues in the medical field, revealing gender biases that are negatively impacting women's treatment, and explaining exactly how you can start forcing others to take women's voices seriously. Maya is all about exposing the systematic injustices of our medical system and empowering women to find a treatment that is made for them, instead of forcing women to conform to the masculine medical standard. She believes in the power of women sharing their experiences around disease and misdiagnosis, and breaking down the institutional issues found in the traditional medical system to find healing for all types of people. While it is not easy to question the medical professionals we have been told are all-knowing, it is really up to you to advocate for yourself and provide resources to be the most informed about your health as possible. A healthy dose of skepticism and awareness is what Maya believes will help you reconnect with your bodies innate ability to heal, and shake up the conventional medical system for good. Does Maya’s message of inequality and bad medicine ignite your passion for change? Share with us in the comments on the episode page. Quotes “The knowledge gap and the trust gap are really mutually reinforcing. The less we know about women's bodies, the more we kind of dismiss any kind of unexplained symptoms.” (12:40) “I certainly hope that my book will at the very least empower more women by giving them the background and context of this historical legacy so that they do understand sort of what they are stepping into.” (25:43) “I think there is so much power in women sharing their stories, their experiences with diseases. There is so much knowledge to be tapped there.” (40:51) “There is a lot of potential for a kind of united front, to say so many of our problems lie at the root in this distrust of women, and to overcome them we need to really start listening to women.” (44:55) Resources Mentioned Maya Dusenbery Website Doing Harm by Maya Dusenbery Follow Maya on Twitter | LinkedIn Other Resources: The Essential Oils Hormone Solution by Dr. Mariza Check out the full show notes page Keep up with everything Dr. Mariza Follow Dr. Mariza on Facebook | Instagram | Twitter | Youtube
Maya Dusenbery is a journalist, editor, and author of the book Doing Harm: The Truth About How Bad Medicine and Lazy Science Leave Women Dismissed, Misdiagnosed, and Sick. Doing Harm was named one of the best books of 2018 by NPR and Library Journal. Join us as Maya and I discuss her own autoimmune disease and her journey to writing Doing Harm.
Show Highlights Terri talks about the onerous journey in trying to get to resolution for her daughter’s daily pain and the navigation through the fragmented health system and signing up for MDVIP to pay for concierge healthcare Terri shares the stories and statistics around how the healthcare system is failing women through underdiagnosis or lack of diagnosis Jacqueline and Terri talked about how we women know our own bodies and doctors need to listen to us Terri emphasizes the need to investor more dollars into women’s health, diagnostics, and treatments Terri and Jacqueline talk about how you can advocate for your own health and for the health of your loved ones Terri talks about the lack of visibility into all the medical records for herself and for her kids as Terri can’t see the doctor’s notes Terri and Jacqueline discuss how you can be an advocate for your own health or the health of your loved ones Terri shares recommendations for changes as suggested by Maya Dusenbery in Doing Harm Terri’s Key Takeaway Terri has come to believe that the journey with her daughter is a sign from the universe (along with her professional experience) that she needs to take a greater role in advocating for better healthcare for women. References in the Podcast Dr. Bev Joyce: https://www.linkedin.com/in/beverly-joyce-md-84292475/ Hemalee Patel: https://www.linkedin.com/in/drhemalee/ PCOS: https://www.mayoclinic.org/diseases-conditions/pcos/symptoms-causes/syc-20353439 Doing Harm: https://www.mayadusenbery.com/book Tilted Lean In Podcast with Serena Willams: https://leanin.org/podcast-episodes/why-women-get-overlooked-in-healthcare-with-serena-williams MDVIP: https://www.mdvip.com/ Advocating for Your Health: https://medium.com/terri-hanson-mead/advocating-for-your-health-5051753fd4d Contact Jacqueline can be reached through her website https://www.jacquelinesteenhuis.com/ and can be followed on Twitter @TipsyCoPilot. You can follow Terri on Twitter at @terrihansonmead or go to her website at www.terrihansonmead.com or on Medium: https://medium.com/@terrihansonmead. Feel free to email Terri at PilotingYourLife@gmail.com. To continue the conversation, go to Twitter at @PilotingLife and use hashtag #PilotingYourLife.
In episode 5, the sisters discuss human touch and other topics relevant to the #shamelessbook by @sarcasticlutheran Pastor Nadia Bolz-Weber. Naomi shares her thoughts after catching Nadia on her book tour. From perceptions around different kinds of human touch to purity culture and Christian charm school books, this episode takes another look at the way many of us were taught to “love the right way” according to Christianity and purity/abstinence culture. Join the discussion! What were you taught growing up about modesty, sexual purity, virginity, waiting til marriage til have sex, etc. Let us know in the comments below!Also mentioned: Rage Becomes Her by Soraya Chemaly and Doing Harm by Maya Dusenbery, Christian Charm Course by Emily Hunter and For The Love Podcast with Jen Hatmaker, as well as The Paranormal Podcast and everything Jim Harold.More About Shameless by Nadia Bolz-Weber Raw, intimate, and timely, Nadia Bolz-Weber’s latest book offers a full-blown overhaul of our harmful and antiquated ideas about sex, gender, and our bodies. Christians are obsessed with sex. But not in a good way. For generations countless people have suffered pain, guilt, and judgment as a result of this toxic fixation on sex, the body, and physical pleasure. In the follow-up to her celebrated New York Times bestseller Accidental Saints, Bolz-Weber unleashes her critical eye, her sharp pen, and her vulnerable but hopeful soul on the caustic, fear-riddled, and religiously inspired messages about sex that have fed our shame. In turn, Bolz-Weber offers no simple amendments or polite compromises, because the stakes are too high—and our souls and our bodies are worth too much. Instead, this tattooed, swearing, modern-day pastor calls for a new reformation. She urges us to take antiquated, sexist ideas about sex, gender, and our bodies and “burn them the f*ck down and start all over.” This is a journey of holy resistance. Along the way, as anecdotes to shame, heresy, and all-too-familiar injustice, Bolz-Weber dispenses grace, freedom, and courage. She shares stories, poetry, and scripture, cultivating resilient hope and audacious love rooted in good news that is “powerful enough, transgressive enough, and beautiful enough to heal not only the ones who have been hurt but also those who have done the hurting.”In Bolz-Weber’s most personal, bracingly honest book yet, she shares intimately about her life, with her trademark blend of vulnerability, humor, and candor. If you’ve been mistreated, confused, angered, and/or wounded by the shaming sexual messages so prevalent in religion, this one is for you.Also, be sure to tune into the next time for a special episode with Lydia’s good friends Bethany LaRue and Matt Brown of We Didn’t Ask for This Podcast!Get in touch with us at:Email: weturnedoutfine@gmail.comWebsite: weturnedoutfine.comTwitter: weturnedoutfineInstagram: wtofpodcastWe Turned Out Fine is created and produced by Naomi and Lydia Jackson and all editing elements by Lydia Jackson. ©2019 We Turned Out Fine.
Maya Dusenbery is a journalist, editor, and the author of Doing Harm: The Truth About How Bad Medicine and Lazy Science Leave Women Dismissed, Misdiagnosed, and Sick. She is editorial director of Feministing.com and has previously been a fellow at Mother Jones magazine and a columnist at Pacific Standard. Her work has appeared in publications like Slate, Cosmopolitan.com, HuffPost, TheAtlantic.com, Popular Science, and Teen Vogue, among others. 03:01 More than 40% of women with an autoimmune disease have been told by a doctor that they are overly concerned with their health. 04:03 Gender gap delays in diagnosis. 05:03 “The knowledge gap and the trust gap.” 06:38 Why autoimmune diseases are so difficult to diagnose. 09:26 Why it’s difficult for patients to trust themselves in their pain and problems. 10:05 Underestimating the authority that medical professionals hold. 13:14 The issues with treating women properly. 14:19 “Women are 50% to 75% more likely than men to have an adverse drug reaction.” 15:10 The remarkable problem that leaves one-half of the population less well treated. 15:49 “The less that we know about women’s bodies ... the more that we tend to ... dismiss them.” 17:42 “We are poised for change.” —Stacey 19:31 Social media and affecting change. 21:47 Do employers have a stake in this? 24:53 Maya’s advice for health care professionals and systems to better cater to millennial women. 25:14 "... listening to women and believing them.” 26:57 Why millennials are more likely to skip primary care and go straight to a specialist. 31:41 “Nobody ... wants their health to become a second full-time job.” 32:12 Health care providers educating themselves on the history of health care and its biases.
Robin on Dr. Ford v. Kavanaugh, lesbiphobia in retirement homes, Somalia's FGM deaths, and how the Koch Brothers miscalculated. Guests: Erica Gonzalez on Puerto Rico's hurricane anniversary; Maya Dusenbery on Doing Harm, her exposé of medicine today.
Maya Dusenbery is an editor, journalist and author of Doing Harm: The Truth About How Bad Medicine and Lazy Science Leave Women Dismissed, Misdiagnosed, and Sick. She was the Editorial Director of Feministing.com, a fellow at Mother Jones magazine, a columnist at Pacific Standard and has written for several publications such as Slate and the New York Post. In this episode, we talk about the massive knowledge gap in medical research for men versus women and how it contributes heavily to several issues from gender bias in the doctor’s office to the experiential gap in treating women-only conditions like endometriosis. We also discuss how to navigate these gaps and biases, take control of your own health, and so much more! To learn more about Maya Dusenbery, visit the show notes.
Janie talks to Maya Dusenbery, the author of "Doing Harm: The Truth about How Bad Medicine and Lazy Science Leave Women Dismissed, Misdiagnosed, and Sick," about the specific biases within the medical system that work against women and specifically women of color, women with disabilities, trans women, and older women, as well as the double bind that works against female patients in which the expression of too much pain is labeled "hysteria" and the suppression of pain leads to misdiagnosis. Maya also discusses her solutions for a more feminist and inclusive medical system that works for all.FOLLOW RELATIVELY HEALTHY ON TWITTER:twitter.com/844stolarxSUBSCRIBE/RATE on Apple Podcasts, Google Play, Stitcher, or wherever you get your podcasts.RELATIVELY HEALTHY IS A FOREVER DOG PODCAST.http://foreverdogproductions.com/fdpn/podcasts/relatively-healthy
Maya Dusenbery, in her book, “Doing Harm,” examines the prevailing gender bias throughout the health and medical profession. As Dusenbery states, “The people making the key decisions about funding, where resources go, what gets taught to the next generation of doctors, and who is hired and promoted are still over-whelming white men.” This statement and many more are expressed in this extra special bonus episode.
As part of my women’s health series, I chat to Maya Dusenbery about her new book, Doing Harm: The Truth About How Bad Medicine and Lazy Science Leave Women Dismissed, Misdiagnosed, and Sick. We spend our conversation talking about the book and all that she discovered about the history of ignoring and/or disbelieving women’s pain and the deep, systemic problems that underlie women’s experiences of feeling dismissed by the medical system. Editor of the award-winning site Feministing.com, Maya brings together scientific and sociological research, interviews with doctors and researchers, and personal stories from women across the country to provide the first comprehensive, accessible look at how sexism in medicine harms women today. About Maya Maya Dusenbery is a journalist, editor of the feminist site Feministing.com, and the author of the book Doing Harm: The Truth About How Bad Medicine and Lazy Science Leave Women Dismissed, Misdiagnosed, and Sick. She has been a fellow at Mother Jones magazine and a columnist at Pacific Standard magazine. Her work has also appeared in publications like Cosmopolitan.com, HuffPost, TheAtlantic.com, Bitch magazine, Teen Vogue, New York Post, as well as the anthology The Feminist Utopia Project. Before becoming a full-time writer, she worked at the National Institute for Reproductive Health. Follow Maya Website | Twitter | Book --- Body Kindness study: Want to help advance research on body image healing? I’m co-investigator of a new study with Dr. Jennifer Webb Director of the Integrative Positive Psychology Research Lab in Mindfulness, Body Acceptance, Culture & Health (MIND-BATCH) at UNC Charlotte. We’re looking for female Body Kindness readers living in the U.S. who are either pregnant OR who have at least one child 5 years or younger to complete a survey. Visit www.BodyKindnessBook.com/research to learn more and find out how you can get a free e-book and web-based resources. --- Support the show Thank you to our generous supporters! We are working toward our goal to fund the full season. Can you donate? Please visit our Go Fund Me page. --- You can subscribe to Body Kindness on iTunes, Stitcher, Spotify and iHeartRadio. Enjoy the show? Please rate it on iTunes! - http://getpodcast.reviews/id/1073275062 Are you ready for Body Kindness? Get started today with my free e-course and on-demand digital training. Learn more - http://bit.ly/2k23nbT The New York Times Book Review calls Body Kindness 'simple and true'. Publisher's Weekly says it's 'a rousing guide to better health.' http://bit.ly/2k228t9 Watch my videos about why we need Body Kindness on YouTube. https://youtu.be/W7rATQpv5y8?list=PLQPvfnaYpPCUT9MOwHByVwN1f-bL2rn1V --- Enjoy the show? Please subscribe and rate it. Have a show idea or guest recommendation (even yourself!) E-mail podcast@bodykindnessbook.com to get in touch. Join us on the Body Kindness Podcast Facebook group where you can continue the episode conversations with the hosts, guests, and fellow listeners. See you there! Nothing in this podcast is meant to provide medical diagnosis, treatment, cure, or prevent any disease or condition. Individuals should consult a qualified healthcare provider for medical advice and answers to personal health questions.
Maya Dusenbery, author of Doing Harm, feminist writer, knowledgable AF Doing Harm: After her Rheumatoid Arthritis diagnosis, feminist writer and author of Doing Harm, Maya Dusenbery, intuitively dove into the topic of women's health—not so much the uterus and the ovaries but a more realistic and extensive look at women's health. Why are women treated differently in the ER and the doctor's office? How did medicine become a wealthy, white, male profession? How does the old diagnosis of hysteria still play a role in medicine today? Maya answers these questions and so much more in this must-read. She uses statistics, research, personal hypothesis and heartbreaking stories from other women to make the case that bad medicine and lazy science leave women dismissed, misdiagnosed, and sick. In this episode we discuss all of this plus, of course, self-care in the midst of self-advocacy. Get in touch with Maya: Twitter: @mayadusenbery Website: www.mayadusenbery.com Link to buy book: Here Weekly Challenge: It's simple, my friends: Go to bed at the same time every night, be consistent, and create healthy circadian rhythms! This is so simple AND so important. Maya learned the hard way while writing Doing Harm how much of a difference it makes when your sleep rhythms are interrupted. We all know how much better we feel after a good night's rest. And, most of us know how necessary sleep is for healing. This is something simple you can do to assist your body in getting the most productive sleep possible. If you suffer from debilitating insomnia, I still suggest *trying* this. Simply replace the word "sleep" with "rest" to release some of the pressure. Remember to follow me on IG @sheajackie for updates in my stories! Discussed in this Episode: Maya's RA experience What is women's health and why does it go beyond gynecological care Examples of how women and men have different experiences with the same disease What are the symptoms of a heart attack for women (different than what you think!) How women got kicked out of the medical profession in the 19th century How women got pushed out of research and then analysis Bill Clinton's revitalization act and how it changed things The consequences of keeping women out of research and analysis The history of hysteria The way the diagnosis of hysteria still functions in our society today What medically unexplained symptoms are The knowledge and trust gap How doctors are under educated on diseases that disproportionately affect women The statistics that support this negligence Why men get diagnosed with autoimmune disease faster than women The shocking hypothesis that was drawn about migraines in men vs. women The way we've stereotyped women based on male stereotypes Why some women take men to the doctor with them and the results they get How Maya felt writing Doing Harm How women can empower themselves and advocate for equality in medicine How Lyme was discovered by two women Why it's important to share your story on the internet Resources Mentioned in this Episode: Sex and Gender Women's Health Collaborative Society for Women's Health Research National Women's Health Network Purchase Doing Harm Sini Anderson episode How you can support this Podcast: follow me at jackieshea.com Subscribe/ rate/ review on iTunes Follow me on IG @sheajackie Join the Healing Out Loud Facebook group Share with your friends
Today I’m joined by Maya Dusenbery, a writer, the editor of Feministing.com, and the author of the new book Doing Harm: The Truth About How Bad Medicine and Lazy Science Leave Women Dismissed, Misdiagnosed, and Sick, which explores how gender bias in the medical system is harming women. In this episode we discuss the unconscious biases against women that exist in medicine, where these biases come from historically, and how activism and spreading awareness can help shed light on the issue. It’s time for the medical system to start trusting women’s voices, and it’s going to take big change from health care providers — and brave action from patients — to make it happen. “Throughout medical history women’s activism has been very important in creating change.” - Maya Dusenbery Join Dr. Aviva Romm as she dishes up a weekly dose of the whole truth on health and medicine. To learn more about this episode of Natural MD Radio go to http://www.avivaromm.com/079