Not Alone

In this special women's health episode of the MS Plus podcast series, Continence Nurse Fiona Easton discusses the impact of menopause and perimenopause on bladder health, especially in women with MS. She elaborates on typical changes during menopause, effective management strategies, and the importance of pelvic floor exercises. This episode provides valuable information for women navigating menopause and its associated bladder changes.With thanks to Fiona Easton. Fiona Easton is a registered nurse as well as an MS Continence Nurse and has been working at MS Plus for over 16 years. Fiona's main role involves conducting the continence clinic at the MS Blackburn site as well the MS Watsonia and Williamstown supported living sites in Melbourne.Fiona's background is that of general nursing and she is currently a registered continence advisor. She has a 4-year psychology degree and has experience in palliative care and crisis counselling.Fiona enjoys working with people living with multiple sclerosis, including those who are newly diagnosed through to those with chronic symptoms. And she feels they would be the most resilient group of people she has met. This podcast was developed as part of a comprehensive Women's Health Resource designed for women living with MS, addressing key topics such as family planning & pregnancy, and menopause. This project was developed in collaboration with women living with MS, with support from expert health professionals.To explore the full resource, visit: https://www.msplus.org.au/womenshealth Reach out for support:MS Plus Connect 1800 042 138 or email connect@msplus.org.au Views expressed on the MS Podcast, including any discussions or reference to medications or treatments by podcast guests, do not necessarily represent the views of MS Plus and should not be seen as either an endorsement or rejection of a treatment. MS Plus does not recommend any specific treatment for people living with MS. Decisions about any treatments, taking into consideration the potential benefits and side effects for each individual's circumstances, should be made in careful consultation with the person's neurologist or health care professional.

In this special women's health episode of the MS Plus podcast series, we speak with Susan Agland, an MS neuroimmunology transitional nurse practitioner at John Hunter Hospital, about fertility, subfertility and MS. The discussion covers how MS and its treatments can impact conception, the roles of medication, stress, and the importance of understanding personal risk factors. Susan shares insights from a study she is co-leading, on Artificial Reproductive Technologies in MS, emphasising the challenges faced by women with MS undergoing IVF and the need for better guidelines and support. The episode also highlights the contributions of real-world data to understanding medication safety during pregnancy for MS patients. Listen in to gain valuable insight into fertility and family planning, and where to get support when you are having trouble conceiving.  With thanks to Susan Agland, from the Newcastle Multiple Sclerosis Clinic. Susan Agland supports the John Hunter MS team as Neuroimmunology Transitional Nurse Practitioner. She has worked in the MS clinic since 2003, starting as clinical trial coordinator for the Ausimmune study. Since then, Susan has studied a Masters of Nursing Research, examining the role of stress management in MS. Susan has a special interest in stress management in MS, subfertility in MS and rural and remote care of the person with neuroimmunological disease.This podcast was developed as part of a comprehensive Women's Health Resource designed for women living with MS, addressing key topics such as family planning & pregnancy, and menopause. This project was developed in collaboration with women living with MS, with support from expert health professionals.To explore the full resource, visit: https://www.msplus.org.au/womenshealthFor more information: Pregnancy in MS research survey (ARTiMS) - https://www.hnehealth.nsw.gov.au/our_services/multiple_sclerosis_clinic_newcastle/researchReach out for support:MS Plus Connect 1800 042 138 or email connect@msplus.org.au Views expressed on the MS Podcast, including any discussions or reference to medications or treatments by podcast guests, do not necessarily represent the views of MS Plus and should not be seen as either an endorsement or rejection of a treatment. MS Plus does not recommend any specific treatment for people living with MS. Decisions about any treatments, taking into consideration the potential benefits and side effects for each individual's circumstances, should be made in careful consultation with the person's neurologist or health care professional.

In this episode of the MS Boost, we speak with Dr. Emma Beckett, a passionate science communicator with expertise in food science, nutrition, and biomedical sciences. Dr. Beckett discusses her new book, 'You Are More Than What You Eat,' which focuses on simplifying nutrition and food science to reduce stress and complexity for people, especially those living with MS. The conversation delves into the misconceptions of diet perfection, the challenges of weight management, the societal biases in healthcare, and the importance of focusing on manageable and tailored changes to your diet. Emma emphasizes empowering people to make even the smallest of improvements in their diet, while debunking the myths of a 'perfect' diet and control, and ultimately promoting a more enjoyable and realistic approach to nutrition. This is a compelling conversation that you won't want to miss. “Look after your body, because it's where you live!” – Dr Emma BeckettWith thanks to Dr Emma BeckettDr Emma Beckett (PhD) is a university trained Food and Nutrition Scientist. She has a degree in Biomedical Science and post-graduate degrees in Epidemiology, Food Science, Human Nutrition, & Science Management. She is a senior lecturer in Food Science & Human Nutrition at the University of Newcastle Australia and a senior scientist at Nutrition Research Australia. An academic all-rounder, her research outputs span immunology & microbiology, reproductive health, food choice behaviours, gene-nutrient interactions, and nutrient-environment interactions. She is also an award winning science communicator who can regularly be found online, in print, giving talks, and on television & radio. She aims to share food and nutrition science in a way that helps empower people to make better food and nutrition choices. Knowledge is power in a world of misinformation at fad diets. Referred to as the “Ms Frizzle of Food & Nutrition”, Emma uses her collection of food outfits to spark conversations, sharing fun facts and challenging stereotypes. Food isn't just fuel, its part of our culture, social lives and should be a joy. The best nutrition choices are the ones that nourish you, bring you joy, and fit with your life - Emma wants to share these concepts to help spread the joy. You can read the episode transcript here.To get support with your diet, reach out to a accredited dietician such as the MS Plus dieticians.Reach out for support:MS Plus Connect 1800 042 138 or email connect@msplus.org.auGet in touch to share your comments and suggestions about this episode, or for future guests and episode topics by emailing education@ms.org.au Views expressed on the MS Podcast, including any discussions or reference to medications or treatments by podcast guests, do not necessarily represent the views of MS Plus and should not be seen as either an endorsement or rejection of a treatment. MS Plus does not recommend any specific treatment for people living with MS. Decisions about any treatments, taking into consideration the potential benefits and side effects for each individual's circumstances, should be made in careful consultation with the person's neurologist or health care professional.

In this podcast episode, Julie Orr, an accredited dietitian with MS Plus, explores the relationship between diet and menopause, offering easy to follow strategies for managing menopausal symptoms through nutrition. With a focus on evidence-based insights and compassionate guidance, Julie explores the significance of adopting a wholesome diet rich in whole foods, based on current research. She navigates through hot topics such as soy, identifying foods that can either exacerbate or alleviate symptoms like hot flushes, and unpacks the common issue of weight gain among women during this life stage. Listen in to gain valuable insight into women's health and nutrition.With thanks to Julie  Julie is a skilled community dietitian having worked in the industry for over 30 years.  Julie originally trained at Deakin University as a dietitian.  Julie has worked in a range of clinical settings including hospitals, community health, and for a large portion of her career in the aged care space as a dietitian and Dietitian Team leader.   Julie more recently joined MS Plus to recommence individual client consulting and is really enjoying the opportunity to support her clients living with MS.You can read the episode transcript HereMore information:Australian guidelines for healthy eating: https://www.eatforhealth.gov.au/guidelines/australian-guide-healthy-eatingMS Plus Diet & nutrition:https://www.msplus.org.au/support-services/allied-health-services/diet-and-nutritionMore podcasts and webinars on MS, diet & nutrition: https://www.msplus.org.au/resource-hub?topics=242621Reach out for support:MS Plus Connect 1800 042 138 or email connect@msplus.org.auGet in touch to share your comments and suggestions about this episode, or for future guests and episode topics by emailing education@ms.org.au Views expressed on the MS Podcast, including any discussions or reference to medications or treatments by podcast guests, do not necessarily represent the views of MS Plus and should not be seen as either an endorsement or rejection of a treatment. MS Plus does not recommend any specific treatment for people living with MS. Decisions about any treatments, taking into consideration the potential benefits and side effects for each individual's circumstances, should be made in careful consultation with the person's neurologist or health care professional.

In this episode of the MS Boost, we sit down with Associate Professor Priya Sumithran, an endocrinologist and clinical researcher to discuss weight loss medications, with the most popular and commonly known, being semaglutide or known as the brand name Ozempic. Priya discusses the surprisingly long history of this medication, how it works and what considerations there are before starting this medication, especially for people with other chronic conditions or MS. Priya touches on the barriers to treating obesity, as well as the stigma around weight loss medications but also being obese, and the importance of a comprehensive approach to weight management. With thanks to Associate Professor Priya Sumithran.Associate Professor Priya Sumithran, MBBS (Hons), PhD, FRACP, is an endocrinologist and clinician researcher. She is Head of the Obesity and Metabolic Medicine Group in the Department of Surgery, School of Translational Medicine, Monash University, and Clinical Lead for Obesity Medicine at Alfred Health (Department of Endocrinology and Diabetes).A/Prof Sumithran completed a PhD at the University of Melbourne (Dept of Medicine, Austin) in 2012 and was a senior endocrinologist for 15 years in the obesity management service at Austin Health, including as Head of Obesity Medicine from 2021-2023.A/Prof Sumithran has co-authored >80 peer-reviewed papers, including publications in the New England Journal of Medicine, Lancet, British Medical Journal, Annals of Internal Medicine, Obesity and the Medical Journal of Australia. She served on the council of the Australian and New Zealand Obesity Society from 2017 to 2022.You can read the episode transcript here Reach out for support:MS Plus Connect 1800 042 138 or email connect@msplus.org.auFor support to manage your diet and nutrition, get in touch with an MS dietician to tailor a plan to your nutritional needs.  Get in touch to share your comments and suggestions about this episode, or for future guests and episode topics by emailing education@ms.org.au Views expressed on the MS Podcast, including any discussions or reference to medications or treatments by podcast guests, do not necessarily represent the views of MS Plus and should not be seen as either an endorsement or rejection of a treatment. MS Plus does not recommend any specific treatment for people living with MS. Decisions about any treatments, taking into consideration the potential benefits and side effects for each individual's circumstances, should be made in careful consultation with the person's neurologist or health care professional.

In this episode of the MS Boost,  we speak with Michael Mortenson, a seasoned MS nurse and one of the few recipients of the MS Nurse Australasian Inc. Association's Lifetime Membership. Michael shares his journey into MS nursing, his experiences throughout his 15-year career, and the significant changes in the treatment landscape. Michael shares his insights as a MS Nurse based in Tasmania, the evolving approach to managing MS and the importance of having access to an MS Nurse.With thanks to Michael.To speak with an MS Nurse Advisor like Michael, call Plus Connect to book a free telephone appointment for registered clients. You can read the episode transcript hereReach out for support:MS Plus Connect 1800 042 138 or email connect@msplus.org.auGet in touch to share your comments and suggestions about this episode, or for future guests and episode topics by emailing education@ms.org.au Views expressed on the MS Podcast, including any discussions or reference to medications or treatments by podcast guests, do not necessarily represent the views of MS Plus and should not be seen as either an endorsement or rejection of a treatment. MS Plus does not recommend any specific treatment for people living with MS. Decisions about any treatments, taking into consideration the potential benefits and side effects for each individual's circumstances, should be made in careful consultation with the person's neurologist or health care professional.

*Trigger warning*This is a trigger warning. In today's episode, we're discussing two men's experience of diagnosis and the impact on their lives and mental health, and we briefly discuss suicidal ideation. If you are not in the right place to listen to this topic, please skip from 7 minutes to 8:40 minutes of the episode. Please take care of yourself, and if you are in need of any assistance, please reach out to the people around you, your GP, or supports such as Lifeline, by calling 13 11 14.In this episode of the MS podcast series, in recognition of Men's Health Week, running from 10th to 16th June, David and Andrew share their personal experiences of being diagnosed with MS and its impact on their lives and mental health.David and Andrew have a deeply personal conversation about their initial symptoms, the diagnostic process, and the mental and emotional challenges they faced. The discussion also covers the societal pressures that men still face regarding toughness and emotional openness, as well as the importance of support systems, both professional and personal. They highlight the importance of communication with healthcare professionals and the benefits of getting mental health support. David and Andrew both share their coping strategies and offer advice for other men living with MS, stressing the importance of self-care, listening to your body and seeing the GP, as well as reaching out for support.With thanks to Andrew & David.You can read the episode transcript HereReach out for support:Lifeline on 13 11 14 or online at, www.lifeline.org.au, Beyond Blue on 1300 224 636 or access free, confidential support online, www.beyondblue.org.auMensLine Australia on 1300 78 99 78 or online at https://mensline.org.au/Contact us:MS Plus Connect 1800 042 138 or email connect@msplus.org.auGet in touch to share your comments and suggestions about this episode, or for future guests and episode topics by emailing education@ms.org.au Views expressed on the MS Podcast, including any discussions or reference to medications or treatments by podcast guests, do not necessarily represent the views of MS Plus and should not be seen as either an endorsement or rejection of a treatment. MS Plus does not recommend any specific treatment for people living with MS. Decisions about any treatments, taking into consideration the potential benefits and side effects for each individual's circumstances, should be made in careful consultation with the person's neurologist or health care professional.

In this episode of The MS Boost, we interview Luke Mitchell, a Men's Health Nurse Practitioner specializing in sexual health to discuss erectile dysfunction (ED), its prevalence in the population, misconceptions and links with mental health. Luke provides insight and practical advice for managing ED discussing holistic treatment options, the importance of trusting your health care practitioner and broader health and relationship implications. With thanks to Luke MitchellLuke is a Men's Health Nurse Practitioner with a background in Sexual Health and Urology. He has a special interest in Men's sexual dysfunction, with an emphasis on holistic sexual rehabilitation following prostate cancer. Luke has previously conducted research into the impacts of body image on men's sexual behaviours. He is the current chair of the ANZUNS Sexual Health Special Interest Group, and is an active member of Healthy Male's Health Practitioner Advisory Board. He is currently working in private practice, and as a Prostate Cancer Specialist Nurse in Melbourne. Further supports:Luke is an advisor for Health Male, who is a trusted source of information and facilitator of action on men's health. https://healthymale.org.au/You can read the episode transcript here.Reach out for support:Contact MS Plus Connect for more information on 1800 042 138 or email connect@msplus.org.auIf you are a registered client, you can also make a free, confidential telephone appointment with an MS Nurse Advisor via MS Plus Connect. We have male and female MS Nurse Advisors.Get in touch to share your comments and suggestions about this episode, or for future guests and episode topics by emailing education@ms.org.au Views expressed on the MS Podcast, including any discussions or reference to medications or treatments by podcast guests, do not necessarily represent the views of MS Plus and should not be seen as either an endorsement or rejection of a treatment. MS Plus does not recommend any specific treatment for people living with MS. Decisions about any treatments, taking into consideration the potential benefits and side effects for each individual's circumstances, should be made in careful consultation with the person's neurologist or health care professional.

In this episode of the MS Boost podcast series, we are joined by Fatima, a person living with multiple sclerosis (MS), who shares her personal journey to diagnosis. Like many other people living with MS, Fatima was constantly misdiagnosed while experiencing a myriad of symptoms. Fatima's story delves into the importance of persistence in seeking medical help, the emotional impact of receiving a diagnosis, and the gradual process of acceptance and adjustment as a person living with a new diagnosis. Fatima talks about how she built her village of support people, including the integration of physical and mental health supports to help her continue to live well with MS. Fatima talks about her fears and anxiety around her diagnosis, and how she continued to do all the things she wanted to in her life, having children, travelling and running her own business. Fatima's resilience and determination shine through as she navigates life with MS, and it's inspiring to hear her journey and advice for other people who may have just been newly diagnosed.With thanks to Fatima.You can read the episode transcript hereReach out for support:MS Plus Connect 1800 042 138 or email connect@msplus.org.auGet in touch to share your comments and suggestions about this episode, or for future guests and episode topics by emailing education@ms.org.au Views expressed on the MS Podcast, including any discussions or reference to medications or treatments by podcast guests, do not necessarily represent the views of MS Plus and should not be seen as either an endorsement or rejection of a treatment. MS Plus does not recommend any specific treatment for people living with MS. Decisions about any treatments, taking into consideration the potential benefits and side effects for each individual's circumstances, should be made in careful consultation with the person's neurologist or health care professional.

“I do think it's being talked about more now, and I think it's really important for people to be seeing that there's no shame in having a trauma response to pain, and it's very treatable, trauma is very treatable. But the first step to treating it, of course, is to recognise like, ‘Oh, I think I'm having a traumatic response to my illness, my diagnosis etcetera.' ”In this episode of the MS Boost, psychotherapist Katie Willard Virant discusses the impact of a diagnosis of multiple sclerosis (MS) and how it can be a source of trauma for some people . We discuss how the shock of receiving a chronic illness diagnosis can cause long-lasting trauma, affecting peoples' perceptions of themselves and their interactions with the healthcare system. Katie emphasises the importance of recognizing these trauma responses, such as fear, dissociation, and anxiety, as legitimate and treatable conditions.We also touch on the significance of healthcare professionals validating people' experiences, the role of social support and trust, and the potential for post-traumatic growth. Katie offers insights into therapy as a tool for processing trauma and strategies to help people who may feel stuck in the trauma of diagnosis.  This episode provides a deep dive into the emotional complexities of receiving a diagnosis of a chronic condition, and tips to help you move forward.   With thanks to Katie Willard Varant. You can read the episode transcript here. For more support, reach out to Lifeline on 13 11 14 or online at, www.lifeline.org.au, or Beyond Blue on 1300 224 636 or access free, confidential support online, www.beyondblue.org.au Reach out for support:MS Plus Connect 1800 042 138 or email connect@msplus.org.au  Get in touch to share your comments and suggestions about this episode, or for future guests and episode topics by emailing education@ms.org.au Views expressed on the MS Podcast, including any discussions or reference to medications or treatments by podcast guests, do not necessarily represent the views of MS Plus and should not be seen as either an endorsement or rejection of a treatment. MS Plus does not recommend any specific treatment for people living with MS. Decisions about any treatments, taking into consideration the potential benefits and side effects for each individual's circumstances, should be made in careful consultation with the person's neurologist or health care professional.

In this episode of the MS Boost, we discuss the challenges of living with chronic illness with psychotherapist Katie Willard Virant. Katie, a practitioner and author of the blog 'Chronically Me' on Psychology Today, shares her insights into the societal pressures that lead people to wear a 'costume of wellness' despite their health struggles, which inspired her article 'Feeling Sick, Faking Well', where Katie explores the concept of projecting wellness to meet societal expectations and the implications of this facade on mental health. We chat about how this can look for people in their everyday lives, and the particular impact that this may have on mothers with MS, given that the majority of people diagnosed with MS are female and often in the prime of family life. Katie also provides advice on how people can begin to shift towards being more authentic and the importance of taking up space in the world despite living with chronic illness. This episode provides a deep dive into the emotional complexities of living with an ongoing health condition and strategies for coping with societal pressures.With thanks to Katie Willard Virant.You can read the episode transcript hereFor more support, reach out to Lifeline on 13 11 14 or online at, www.lifeline.org.au, or Beyond Blue on 1300 224 636 or access free, confidential support online, www.beyondblue.org.auReach out for support:MS Plus Connect 1800 042 138 or email connect@msplus.org.auGet in touch to share your comments and suggestions about this episode, or for future guests and episode topics by emailing education@ms.org.au Views expressed on the MS Podcast, including any discussions or reference to medications or treatments by podcast guests, do not necessarily represent the views of MS Plus and should not be seen as either an endorsement or rejection of a treatment. MS Plus does not recommend any specific treatment for people living with MS. Decisions about any treatments, taking into consideration the potential benefits and side effects for each individual's circumstances, should be made in careful consultation with the person's neurologist or health care professional.

Vitamin D has a complex relationship with MS, with links to increased risk of diagnosis, influencing gene expression in immune cells and generally being lower in people living with MS. In this episode of the MS Boost, we speak with Dr Wei, neurologist and researcher from the Alfred MSNI clinic, and discuss how much vitamin D people with MS need, how to get adequate levels of Vitamin D, as well as the role of supplementation in children of parents with MS.With thanks to Dr Wei Yeh.Presenter:Dr Wei Yeh is a post-doctoral research fellow in the Department of Neuroscience, School of Translational Medicine, and neurologist in the Multiple Sclerosis and Neuroimmunology (MSNI) Unit at Alfred Health. His PhD investigated modifiable factors which interact with MS, specifically vitamin D immunobiology, through transcriptomics, and peri-pregnancy disease activity.You can read the episode transcript here.Reach out for support:MS Plus Connect 1800 042 138 or email connect@msplus.org.auGet in touch to share your comments and suggestions about this episode, or for future guests and episode topics by emailing education@ms.org.au  Views expressed on the MS Podcast, including any discussions or reference to medications or treatments by podcast guests, do not necessarily represent the views of MS Plus and should not be seen as either an endorsement or rejection of a treatment. MS Plus does not recommend any specific treatment for people living with MS. Decisions about any treatments, taking into consideration the potential benefits and side effects for each individual's circumstances, should be made in careful consultation with the person's neurologist or health care professional.

This episode of the MS Boost features Nicola Palfrey, a child clinical psychologist and head of clinical leadership at Headspace, focusing on how parents diagnosed with multiple sclerosis can effectively communicate with their teenagers about the diagnosis. Nicola shares her views on teens and how they often get a bad rap, and the complexities of adolescent development. Nicola chats about the importance of respecting teens' experiences and offers strategies for parents to engage in meaningful conversations, that teens may be more receptive to. Nicola also provides parents with tips about signs to look out for that may hint your teen isn't coping and may need some additional support, and the importance of teens being part of the family conversation. With thanks to Nicola Palfrey.Nicola Palfrey is a Clinical Psychologist and currently works as Head of Clinical Leadership at headspace National where she works to support the best possible delivery of care to young people experiencing mental health concerns. She also has a lived experience as a young carer to her mother who had MS.  If you need more support, reach out to Lifeline on 13 11 14 or online at, www.lifeline.org.au, or Beyond Blue on 1300 224 636 or access free, confidential support online, www.beyondblue.org.auYou can read the episode transcript here. Reach out for support:MS Plus Connect 1800 042 138 or email connect@msplus.org.auGet in touch to share your comments and suggestions about this episode, or for future guests and episode topics by emailing education@ms.org.au Views expressed on the MS Podcast, including any discussions or reference to medications or treatments by podcast guests, do not necessarily represent the views of MS Plus and should not be seen as either an endorsement or rejection of a treatment. MS Plus does not recommend any specific treatment for people living with MS. Decisions about any treatments, taking into consideration the potential benefits and side effects for each individual's circumstances, should be made in careful consultation with the person's neurologist or health care professional.

In this episode we chat with neurologist Dr Cassie Nesbitt, one of the principal investigators for haematopoietic stem cell transplantation (HSCT) at the Alfred Hospital in Melbourne. Cassie explains the process of HSCT, risks and considerations for accessing HSCT treatment overseas, as well as the current research on who is likely to benefit and how this is accessed in Australia. Cassie outlines things to consider when undergoing HSCT such as fertility preservation, and the impact of HSCT on the immune system. We chat about how hope plays a role in people taking risks for treatment, and the future of HSCT and treatment for MS. Cassie also highlights how collaborative the MS HSCT community of neurologists are, and that they welcome people who have undergone HSCT overseas to continue seeing their neurologists and engaging in their healthcare With thanks to Dr Cassie NesbittDr Cassie Nesbitt is a neurologist at Alfred Health in Melbourne. She is one of the principle investigators for HSCT at the Alfred, and one of the Autologous Haematopoietic Stem Cell Transplant (AHSCT) Registry Steering Committee Members.You can read the episode transcript HereFor more information about HSCT:MS Research Australia: https://www.msaustralia.org.au/ahsct/Get in touch with MS Plus to speak with a Nurse Advisor about HSCT and treatment options Reach out for support:MS Plus Connect 1800 042 138 or email connect@msplus.org.auGet in touch to share your comments and suggestions about this episode, or for future guests and episode topics by emailing education@ms.org.au Views expressed on the MS Podcast, including any discussions or reference to medications or treatments by podcast guests, do not necessarily represent the views of MS Plus and should not be seen as either an endorsement or rejection of a treatment. MS Plus does not recommend any specific treatment for people living with MS. Decisions about any treatments, taking into consideration the potential benefits and side effects for each individual's circumstances, should be made in careful consultation with the person's neurologist or health care professional.

With thanks to Olivia Wills.Olivia is an Accredited Practising Dietitian and member of Dietitians Australia's. She completed a Bachelor of Nutrition and Dietetics (Hons)(Deans Scholar) from the University of Wollongong in 2021. Olivia is now completing a PhD in multiple sclerosis and lifestyle management and is supported by a postgraduate scholarship from MS Australia.At the heart of Olivia's research is her commitment to enhancing the lives of those living with MS. Her research focuses on the impact of adopting protective health behaviours to maximise lifelong brain health and she is particularly passionate about translational research, engaging healthcare professionals and people living with MS to support her research findings into actionable strategies. Olivia also has experience in providing dietetic counselling services for a range of endocrine, gastrointestinal, metabolic disorders and neurological disorders. She is a firm believer of providing individualised and specific advice and support to all of her patients and is a strong advocate for adopting a holistic approach in the management of medical conditions.Check out the episode transcript here.Check out the Brain Health: time matters in multiple sclerosis report here.  Views expressed on the MS Podcast, including any discussions or reference to medications or treatments by podcast guests, do not necessarily represent the views of MS Plus and should not be seen as either an endorsement or rejection of a treatment. MS Plus does not recommend any specific treatment for people living with MS. Decisions about any treatments, taking into consideration the potential benefits and side effects for each individual's circumstances, should be made in careful consultation with the person's neurologist or health care professional.

Linda Rowley, mental health consultant, delves into the complexities of mental health for carers, focusing on the overlooked experience of ambiguous loss. Linda discusses the importance of acknowledging these emotions, how to find meaning and hope, as well as the need for compassion and self-care for carers. Linda is a wellbeing specialist with a professional interest in ambiguous loss. Linda draws on current research on ambiguous loss and wellbeing science coupled with her own lived experience. With qualifications in business wellbeing, positive psychology and the neuroscience of leadership, Linda brings a robust evidence base to her work.With thanks to :Linda RowleyPlease see episode Transcript Reach out for support:MS Plus Connect 1800 042 138 or email connect@msplus.org.auGet in touch to share your comments and suggestions about this episode, or for future guests and episode topics by emailing education@ms.org.au Views expressed on the MS Podcast, including any discussions or reference to medications or treatments by podcast guests, do not necessarily represent the views of MS Plus and should not be seen as either an endorsement or rejection of a treatment. MS Plus does not recommend any specific treatment for people living with MS. Decisions about any treatments, taking into consideration the potential benefits and side effects for each individual's circumstances, should be made in careful consultation with the person's neurologist or health care professional.

Check out the transcript here.Medical Gaslighting: Multiple Sclerosis' Dirty Little Secret? Authored by Rachel HorneWith thanks to Rachel Horne.Rachel Horne is a journalist and MS advocate. Rachel was diagnosed with MS in 2009, age 43. She has written extensively about the disease and has co-authored a number of papers published in The BMJ, Neurology, Nature Reviews Neurology and other prestigious journals. Rachel has also appeared on BBC's Radio Four to talk about living with MS. In 2022, she set up the Rachel Horne Prize for Women's Research in MS – an international, annual award which recognizes a woman scientist for their outstanding contribution to women's health-related research in MS. Rachel is an Honorary Research Fellow at Queen Mary University, London and has a strong interest in promoting gender-equality and diversity in the MS community. She is on social media: @rachelhorne19. Have you experienced medical gaslighting? We'd love to hear from you, get in touch to share your comments and suggestions about this episode, or for future guests and episode topics by emailing education@ms.org.au  Reach out for support:MS Plus Connect 1800 042 138 or email connect@msplus.org.au

In this episode of the new fortnightly series, the MS Boost, we discuss a new subcutaneous delivery mode for Tysabri, with MS nurse Louise Rath and the things you need to consider when making a switch, including the practical considerations, efficacy, logistics to costs and potential side effects.Check out a copy of the transcript here.With thanks to Louise Rath, MS NurseLouise Rath is the MS neuroimmunology nurse consultant at Alfred Health in Melbourne, Victoria. She has over 20 years' experience in public neurology services including outpatient appointments. Louise is the nurse clinical lead at the Alfred Multiple Sclerosis & Neuroimmunology Clinic focusing on patient experience, promoting engagement in health care and developing health literacy documents for the service with consumers.For more information about medications, call MS Plus Connect to speak with an MS Nurse Advisor.Reach out for support:MS Plus Connect 1800 042 138 or email connect@msplus.org.auGet in touch to share your comments and suggestions about this episode, or for future guests and episode topics by emailing education@ms.org.au 

In this podcast episode, Leif Lagesen, an accredited practicing dietitian and habit science practitioner, discusses the mechanisms behind building better habits. He explores the steps involved in building long-lasting habits and shares his tips on how small changes can lead to lasting lifestyle changes. Leif is an accredited practicing dietitian, with dual degrees in Sport and Exercise and Nutrition Dietetics. He is highly energised by the fusion of behavioural change strategies with health technologies. His experience extends from working with national health coaching programs to clinical settings, and includes various collaborations with health tech startups.With thanks to Leif.Reach out for support:MS Plus Connect 1800 042 138 or email connect@msplus.org.auGet in touch to share your comments and suggestions about this episode, or for future guests and episode topics by emailing education@ms.org.au 

Summer brings the risk of natural disasters, and preparing mentally is just as important as preparing physically. In this podcast, Catherine and Michael, MS Social Work Advisors discuss the importance of preparing mentally for crisis, and strategies to help people feel confident this coming summer season.  With thanks to Catherine and Michael Reach out for support:MS Plus Connect 1800 042 138 or email connect@msplus.org.auGet in touch to share your comments and suggestions about this episode, or for future guests and episode topics by emailing education@ms.org.au

With the current high cost of living, many households are impacted, and their budgets are tightening. In this podcast, Catherine and Michael, MS Social Work Advisors discuss how to tackle the cost-of-living crisis and how to find some financial relief, with no concession card required. With thanks to Catherine and Michael, MS Plus Social Work Advisors.View the episodes transcript here.Reach out for support:MS Plus Connect 1800 042 138 or email connect@msplus.org.auGet in touch to share your comments and suggestions about this episode, or for future guests and episode topics by emailing education@ms.org.au Resources mentioned in today's episode:MoneysmartNational Debt Line  Phone: 1800 007 007Good Shepherd No Interest Loans (NILs)Government Energy Comparison websitesVictoriaNSW, ACT, Queensland, South Australia and TasmaniaBeing safe online:Scam Watch

Nutrition can play an important role for women when trying to conceive, and it can be hard to find evidence-based information when thinking about making changes to your diet. Accredited Practising Dietitian and Certified Fertility Dietitian, Mariam Metwally discuss the impact of nutrition on preconception and fertility, and the specific considerations for women with MS.Mariam, founder of Tayyib Nutrition, is passionate about helping women gain relief from conditions like PCOS and supporting women optimise their diet and lifestyle to support fertility and preconception health. She's also passionate about MS and using diet and lifestyle to help improve quality of life, particularly for women in the preconception period. This podcast is presented as part of the MS Australia Community Program for Women's Health Week 2023.With thanks to Mariam Metwally from  Tayyib NutritionView the episode transcript here. Reach out for support:MS Plus Connect 1800 042 138 or email connect@msplus.org.auGet in touch to share your comments and suggestions about this episode, or for future guests and episode topics by emailing education@ms.org.au

Dr Francesca Bridge is a Multiple Sclerosis and Neuroimmunology Fellow at the Alfred Hospital and a PhD Candidate at Monash University.  Clinically, Francesca cares for people with multiple sclerosis and other neuroimmunological conditions.  Her research interests lie in women's health and multiple sclerosis.  Specifically, the impact of menopause on MS disease activity and the risk of cervical cancer in MS. In this podcast, Dr Bridge discuss the relationship between sex hormones and MS disease activity, and clinical course, particularly around the time of menopause. She discusses treatments for women experiencing menopause and empowering women to talk about their experience, rather than suffer in silence.With thanks to Dr Francesca Bridge.View the episodes transcript here.Reach out for support:MS Plus Connect 1800 042 138 or email connect@msplus.org.auGet in touch to share your comments and suggestions about this episode, or for future guests and episode topics by emailing education@ms.org.au

For someone living with MS, the changes in sensory load and sensations can impact on one's quality of life. In the Learn from Me series, MS Plus Peer support coordinator Kim chats with Mark who shares his experience of sensory symptoms since being diagnosed with MS. Mark discusses the challenges and offers helpful tips and strategies that help him manage every day.With thanks to Mark Elisha, MS Peer.Read the episode transcript here.Reach out for support: MS Plus Connect 1800 042 138 or email connect@msplus.org.auGet in touch to share your comments and suggestions about this episode, or for future guests and episode topics by emailing education@ms.org.au 

Good sleep can be hard to get, and it's vital for wellbeing. Sleep Coach Carla Butler shares tips for good sleep, and why this is so critical for good health.Presenter:Carla Butler is a sleep and recovery coach, and a women's health coach from Ora Sleep Coaching. Carla's passion for sleep coaching was sparked by her own personal tragedy, after her father passed away due to chronic disease, partly caused by his poor sleep health and Carla knew that she needed to take action to protect her own health and longevity. Through her own journey to better sleep, Carla has gained a wealth of knowledge and expertise that she now uses to help others live better lives through private coaching, public workshops, and corporate seminars. With thanks to Carla Butler.Read the episode transcript here.Reach out for support:MS Plus Connect 1800 042 138 or connect@msplus.org.auGet in touch to share your comments and suggestions about this episode, or for future guests and episode topics by emailing education@ms.org.au 

Anjelo Ratnachandra is the founder of Beyond Pain and an award-winning physiotherapist who established one of the first private chronic pain and fatigue physiotherapy services in Australia. Anjelo has extensive experience having worked with chronic illnesses for almost 2 decades, and also experiences chronic pain himself. Aside from his work at Beyond pain, he is on the board of Chronic Pain Australia. Anjelo discusses his experience with chronic pain and the importance of treating the many complex facets of pain, such as mental health.With thanks to Anjelo Ratnachandra, Founder & Director from Beyond PainChronic Pain Australia's National Pain Week is Australia's annual awareness event for chronic pain. National Pain Week takes place in the last week of July each year. National Pain Week 2023 will run from 24-30 July 2023. Reach out for support: MS Plus Connect 1800 042 138 or mail to connect@msplus.org.au  Feedback? Email us at education@ms.org.au

Men face greater health risks than women in Australia, they are less likely to seek help from their doctor and often don't go until an illness is in its later stages. Jeff Lawrance, Senior Delivery Manager and Occupational Therapist with the MS Plus Employment Support Service discusses the barriers that men with MS face in the workplace, and how things such as stereotypical views of masculinity can influence this. Jeff offers invaluable advice and strategies to help you overcome these barriers and assist you in making the changes to feel better at work. Reach out for support: MS Plus Connect 1800 042 138 or email to connect@msplus.org.au  Want support at work, get in touch with the Employment Support ServiceFeedback? Email us at education@ms.org.au

Clinical trials are essential for the development of new medications and interventions, but how are they run and what is involved when you agree to participate in one? Dr Therese Burke AM is working as the Clinical Platform Coordinator at MS Australia to bring adaptive clinical trials to life for people with multiple sclerosis. Therese has been working in clinical trials and research since 1993 and, explains what a clinical trial might involve for participants.With thanks to Dr Therese Burke AM, Clinical Platform Coordinator at MS AustraliaFor more information about clinical trials: MS TrialsReach out for support: MS Plus Connect 1800 042 138 or email  connect@msplus.org.au  Feedback? Email us at education@ms.org.au

MS Plus Executive Manager and Nurse Practitioner, Jodi Haartsen chats with Information Officer at MS Trust UK, Simon Webster about navigating the multitude of information found online. An important discussion around how to differentiate factual, evidence-based information from opinion or lies and strategies on how to navigate the internet safely.

MS Plus Executive Manager and Nurse Practitioner, Jodi Haartsen discusses the stigmatisation of women's health issues, and the barriers women face to accessing and receiving quality care. Jodi also examines the future of women's and girls' health and how this will impact how we think of women's health needs in MS.

The prospect of having to use a wheelchair can be daunting and frightening for anyone. But it is sometimes necessary to ensure a person's autonomy and ability to continue enjoying life. Join Mark on the 'Learn from me' podcast series as he shares his experience in adjusting to using a wheelchair to enhance his independence.

As part of the ‘Learn from Me' series, MS Plus Peer support coordinator, Kim Repcak speaks with the inspirational and very honest, Mark Wilson. They chat about the importance of staying connected with friends and how to stop letting things get in the way of catching up with your mates.

Do you find yourself surrounded by stuff but don't know how or where to start to declutter? Declutter coach and professional organiser from Space and Time, Julie Cliff  is thrilled to share her passion for decluttering and getting organised. Listen in to hear Julie's top tips and tricks for "clearing out stuff" and refreshing your space. With thanks to Julie Cliff, declutter coach from Space & Time Reach out for support:NSW, ACT, VIC & TAS: MS Plus 1800 042 138QLD: MS Queensland 1800 177 591WA: MSWA 08 9365 4888SA & NT: MS Society SA & NT 1800 812 311  Feedback? Email us at education@ms.org.au

Parenting can be hectic at the best of times. If you're living with MS, trying to juggle your needs and those of your partner and your children brings additional challenges. Join Silas on this new ‘Learn from Me' podcast as he shares his experience of being a busy dad living with MS. Silas describes the various strategies he has put in place that support him and his family to enjoy life and live well. 

Join Shannan on this ‘Learn from me' Podcast as she shares her valuable insight into being a teenager with MS. Shannan shares her tips on juggling MS and being a teenager; from telling her friends about her diagnosis to managing her studies.

Join Matt on this new ‘Learn from me' Podcast. Matt openly discusses the challenges he has faced adjusting to SPMS (Secondary Progressive Multiple Sclerosis). He shares the many ways he has learnt to live well with SPMS through utilising a range of MS Services and additional supports like the NDIS. Matt describes all the various life style factors he has needed to focus on to take charge of his life and enjoy it.

Join Megan on the new ‘Learn from me' Podcast as she shares her incredible experience and valuable insight into working and managing her MS. Megan describes the various strategies and supports she has used to maintain her health and thrive in her workplace both physically and mentally.

Join Nicola Graham as she chats with Brett Drummond, the co-founder of MStranslate, about the promising topic of remyelination. Remyelination is the process of the myelin sheath on nerve fibres being restored after it has broken down. This is a natural process but does not happen in people with MS. Will remyelination be possible for people with MS in the future? Brett takes listeners through the latest research on remyelination and what this could mean for people living with MS.

Join Melissa Katz on this new ‘Learn from me' Podcast. Melissa shares her valuable insight into being a Mum with RRMS from pregnancy to teenagehood. Melissa recalls some of the challenges she has faced but also the strategies she has used to enjoy being a Mum with MS.

It's a confusing world out there in terms of what to include in your diet if you have MS. There are lots of myths and misunderstandings. So let's clear all that up for you today and give you a food roadmap. To help us do this MS Dietitian, Jady Lam, will share her insights.

In this episode we are looking at the of EBV or Epstein Barr Virus. EBV is currently all over the media as a possible cause of MS, but given 94% of the general population has EBV but most do not go on to develop MS, what's going on, what does this all mean, what do you need to know so that you can make sure you are getting the best treatment possible? We will answer your questions and concerns with the real science as MS Education and Wellbeing Coordinator, Nicola Graham picks the brains of Brett Drummond from MS Translate. Please note: the opinions expressed in this podcast are those of the interviewee and not necessarily those of Multiple Sclerosis Limited.

Join Nicola Graham as she chats with Emeritus Professor Sheila Lennon. Sheila joined Flinders University in 2012 as Foundation Chair of Physiotherapy and has over 40 years experience in physiotherapy. Her area of research and teaching expertise is neurological rehabilitation and she runs regular balance and mobility programs. Sheila offers suggestions to help strengthen and maintain your balance and mobility and strategies to prevent falls. Thanks to Pro Podcast Production for their support in producing the MS Podcast series.

Clare Reilly hosts an international Podcast Series called ‘MS Understood'. Claire interviews over 50 fascinating people from all walks of life including comedian Tim Fergerson and Emily Padfield from the Netflix series Win the Wilderness. As a person living with MS, Clare extracts great tips to overcome the challenges of MS.

Join Nicola Graham as she chats with Ian Heydon about how he manages with his MS, what inspires him and the approach he has taken to living with multiple sclerosis. Ian was diagnosed with MS in 2010. Ian Heydon is an award-winning writer whose credits include radio shows like the Samuel Pepys Show, The Year My Country Broke and How Green Was My Cactus. His television credits include Kingswood Country, Home Sweet Home, Graham Kennedy's World of Comedy and Howard: The Mild Colonial Boy. Ian recently entered the International Film festival - Focus on Ability with a short film entitled “What's in a Name”, which is just brilliant.

Join Counsellor and Sex Therapist Mr Darren Radley as he shares his wisdom on managing common sexual concerns and difficulties when you have MS. Topics such as erectile difficulties and continence concerns will be addressed along with great tips for sustaining and enriching your relationships. Join Darren as he shares his wisdom derived from thousands of hours working with many people with the same concerns as you.

Join Nicola Graham as she talks with Brett Drummond, the co-founder of MStranslate. Brett provides a summary of the highlights of ECTRIMs 2021, the largest global congress for MS researchers. Brett shares with us the most exciting and surprising MS research presented. Some topics covered include the latest on re-myelination therapies, COVID and vaccines for people living with MS, Gut Microbiome, Symptom Management and Stem Cell therapies.

Men's mental health is an often overlooked subject. Nine Australians die every day from suicide and 75% of them are male, and this is preventable! Gus Worland is a well known TV and radio personality, in particular, for his roles on the ABC's Man Up Program, Triple M's Breaky Crew and the Gotchta4Life Foundation. Gus offers some great tips for better men's mental health and how to start those conversations with your mates to build mental resilience.

Dr Yasmine Probst is a Dietitian and an Associate Professor currently based at the University of Wollongong and a Research Fellow with the Illawarra Health and Medical Research Institute. Yasmine is also a person living with MS. Listen in to hear which foods are best to eat, and why, when living with MS.

MS Nurse Advisor, Bridie Phillips chats about the important issue of bladder dysfunction in multiple sclerosis. This topic can be overwhelming and often causes social isolation for many people. Bridie offers helpful tips and strategies to help improve your quality of life.

Leah Breninger is the recipient of the Barry Allen Art Award at the 2020 MS Art Show and she is living with multiple sclerosis. Leah discusses where her inspiration comes from and how she taps into her creativity to express herself through art. Leah talks about how art has helped her manage multiple sclerosis.

Join Dr Fatima Kahn, a Menopause specialist who has a holistic approach to women's physical, emotion and mental wellbeing; and Jacqui Perry, Physiotherapist at MSL as they define menopause and peri-menopause and discuss the management of menopause for women who are going through it.