Long Covid MD

Send us a textEnjoy Dr Khan's guest appearance on the Outrage Overload podcast. Hosted by David Beckemyer, Outrage Overload explores how outrage media fuels political polarization and stress. David and Dr Khan discuss how the unprocessed grief of a pandemic has contributed to our current polarized social climate.-----------------------------------------------------------------How a Doctor's Long COVID Journey Exposed Systemic FailuresMillions are still living with long COVID, yet many patients are dismissed, misunderstood, or left without answers. In this episode, Dr. Zeest Khan shares her personal journey—from treating critical patients as a cardiothoracic anesthesiologist to becoming a long COVID patient herself.This conversation isn't just about COVID—it's about how we listen, how we heal, and what needs to change.Guest:Dr. Zeest Khan, physician, long COVID advocate, and host of Long COVID MD podcast.Text me your feedback and leave your contact info if you'd like a reply (this is a one-way text). Thanks, DavidSupport the showShow Notes:https://outrageoverload.net/Follow me, David Beckemeyer, on Twitter @mrblog or email outrageoverload@gmail.com. Follow the show on Twitter @OutrageOverload or Instagram @OutrageOverload. We are also on Facebook /OutrageOverload.HOTLINE: 925-552-7885Got a Question, comment or just thoughts you'd like to share? Call the OO hotline and leave a message and you could be featured in an upcoming episodeIf you would like to help the show, you can contribute here. Tell everyone you know about the show. That's the best way to support it.Rate and Review the show on Podchaser: https://www.podchaser.com/OutrageOverloadIntro music and outro music by Michael Ramir C.Many thanks to my co-editor and co-director, Austin Chen.Support the showSubscribe for more at LongCovidMD.substack.com, and follow Dr Khan on X @doctor_zeest

Send us a textBuy Me A CoffeeSummaryIn this conversation, Dr. Zed Zha and Dr. Zeest Khan discuss the complexities of the patient-doctor relationship, particularly in the context of Long COVID. They explore the systemic issues that lead to mistrust in the medical system, the importance of patient advocacy, and the need for a shift in medical culture towards collaboration and understanding. Dr. Zha shares insights from her platform, 'Ask the Patient,' where she gathers feedback from patients to improve medical practice. The discussion emphasizes the need for physicians to recognize their power dynamics with patients and to adopt more compassionate, patient-centered approaches in their care.Dr Zed Zha, MDZed is a physician and author. As a medical culture critic, she is committed to addressing critical issues such as medical misogyny, racism, anti-fatness, and ableism. As a feminist patient advocate, her writing brings to light the often-unspoken challenges within the healthcare system that fracture trust between patients and clinicians and find the common path for us to move forward together. Her nonfiction book defining medical consent is currently in the process of being acquired. Zed is also a storyteller. Her upcoming nonfiction children's book titled Why We Eat Fried Peanuts: A Celebration of Family and Lunar New Year, comes out in January 2025 by becker&mayer! Her Iive performance about her thieving mother is available on The Noturnists Podcast and on Youtube by the Bellevue Literary Review.Support the showSubscribe for more at LongCovidMD.substack.com, and follow Dr Khan on X @doctor_zeest

Send us a textBuy Me A CoffeeSummaryIn this conversation, Dr Zeest Khan speaks with Dr. Katie Brown, who shares her journey as a family doctor and a patient with ME/CFS. She discusses the complexities of diagnosing and treating long COVID, particularly focusing on the role of cranio-cervical instability (CCI) and its impact on patients' health. Dr. Brown emphasizes the importance of understanding the symptoms, the challenges in accessing proper care, and the need for collaboration among healthcare providers to improve patient outcomes. She also offers insights into treatment options and encourages both patients and doctors to take ownership of their health and care.BioDr Katie Brown: Katie Brown, MD has dedicated her career to learning how to treat ME/CFS and related conditions, including Long COVID. Her interest stems from her own experience with the disease which she developed during her first year of medical school. She is very grateful to now be in remission and have the chance to use all she has learned, both as a doctor and a patient, to support others with ME/CFS. The clinical uncertainty around ME/CFS should not mean that patients don't get help. In order to educate and encourage other doctors to treat ME/CFS, she is writing a book outlining best practices for primary care doctors. You can sign up to her newsletter to be notified when the book is published. Sign up for Dr Brown's newsletter: https://www.katiebrownmd.com/newsletterDr Brown's CFS website: https://chronicfatiguedoctornearme.com/Dr Brown's notes on UCI, updated regularly: https://publish.obsidian.md/gsdpc/Publish/Patient+Resources/Cervical+Instability   Additional Resources:Project ECHORessek et al Presentation and physical therapy management of upper cervical instability The Sick Times article on craniocervical instabilitySupport the showSubscribe for more at LongCovidMD.substack.com, and follow Dr Khan on X @doctor_zeest

Send us a textBuy Me A CoffeeIn this episode of Long COVID MD, Dr. Zeest Khan discusses the financial challenges faced by individuals with long COVID and chronic illnesses. She interviews Kira Stoops, a writer and advocate, who shares her personal journey with chronic illness, the importance of asking for help, and the value of building community. They explore the realities of managing finances while living with a disability, the stigma around seeking assistance, and the tools that can aid in adapting to new life circumstances. Kira emphasizes the importance of self-compassion and the need to cut oneself some slack while navigating these challenges.Kira StoopsKira is a writer who is chronically ill. Despite having ME/CFS for nearly a decade, she's determined to live the good life: close connections, moments of sunshine, meaningful work, and snarky humor. Find more of her work at Flying Bicycle Creative, her (free!) Meatscon tool for sickies here, and her Substack about luxe sickie life here. Support the showSubscribe for more at LongCovidMD.substack.com, and follow Dr Khan on X @doctor_zeest

Send us a textBuy Me a CoffeeIs being healthy a personal virtue, or a civic duty? And how should you be treated if you're not healthy?In this episode of Long Covid, MD, Dr. Zeest Khan is joined by Dr. Alyssa Burgart, pediatric anesthesiologist and bioethicist, for a timely conversation on healthism—the idea that health is a moral responsibility—and how it's shaping everything from doctor-patient relationships to public health policy.Together, they explore:What healthism is and why it matters now more than everHow figures like RFK Jr. and Dr. Mehmet Oz are using morality and patriotism to frame health in political termsWhat these narratives mean for people with Long COVID and other chronic illnessesHow blame and bias show up in the clinic—and how both patients and clinicians can push backWhy trauma-informed care is critical for healing, not just treatmentThis episode offers practical insight and ethical clarity for anyone navigating illness in a society that often treats sickness as a personal failure.Read more of Dr Burgart's work on SubstackSupport the showSubscribe for more at LongCovidMD.substack.com, and follow Dr Khan on X @doctor_zeest

Send us a textBuy Me a CoffeeOn this special bonus episode, we share Dr Zeest Khan's guest appearance on the podcast "Taking Healthcare By Storm" hosted by Dr Jean Storm, medical director of Quality Insights.Dr. Khan shares her journey with long COVID, highlighting the importance of peer support, symptom validation, creative treatment approaches, and trusted information sources. She emphasizes the need for curiosity and compassion in healthcare providers managing long COVID patients. Learn more about Dr. Khan by listening to her podcast or by visiting her website or Substack.If you have any topics or guests you'd like to see on future episodes, reach out to us on our website.Publication number QI-040425-GKSupport the showSubscribe for more at LongCovidMD.substack.com, and follow Dr Khan on X @doctor_zeest

Send us a textDr Khan's month in review. What happened in March for the podcast? What will federal cuts to CDC, NIH, FDA and RECOVER mean for long COVID patients? How can we participate in and celebrate holidays like Ramadan, given our physical limitations? Plus a new monthly segment that's more light-hearted called "What's Making Me Happy".What's your rundown and what's making you happy?LinksMichael Lewis' Essay on Heather StoneThe ResidenceSupport the showSubscribe for more at LongCovidMD.substack.com, and follow Dr Khan on X @doctor_zeest

Send us a textJoin the next LivestreamBuy Me A CoffeeIn this episode of Long Covid MD, Dr. Zeest Khan shares audio from her recent Substack Live event. How can you tell if a medical appointment or treatment is helpful or if it's doing more harm than good? Dr Khan shares insights from her personal journey with Long COVID and answers questions from the group. Together, they discuss the complexities of navigating the healthcare system. Dr Khan emphasizes the importance of intentionality in medical appointments, the need for patient empowerment, and the significance of having a primary care provider as a home base. The conversation also covers the challenges of managing multiple appointments, the importance of clear communication with healthcare providers, and strategies for ensuring accurate medical documentation. Support the showSubscribe for more at LongCovidMD.substack.com, and follow Dr Khan on X @doctor_zeest

Send us a textSummaryIn this conversation, Dr Zeest Khan and occupational therapist Amy Mooney discuss sensory processing disorders, which seem to be triggered by a COVID infection. They discuss the implications for individuals with long COVID, and the importance of tailored occupational therapy approaches. They also explore how chronic illness affects sensory integration, the challenges faced by patients, and the need for medical recognition of sensory processing issues. Amy emphasizes the importance of listening to one's body and adapting therapy to individual needs, particularly for those with fatigue-related conditions.Subscribe for more at LongCovidMD.substack.com, and follow Dr Khan on X @doctor_zeest

Send us a textIn this episode, Dr Zeest Khan is joined by Dr Jean Storm, a specialist in long-term care medicine and the medical director of Quality Insights, a healthcare quality improvement organization. Dr Storm worked as a physician in nursing homes during the height of the COVID-19 pandemic and now she's urging us to recognize the impact of long COVID in this population.Dr Khan and Dr Storm discuss the needs of long-term care residents, how long COVID presents and how it is often overlooked. Dr Storm explains ways to advocate for loved ones in nursing homes and strategies to avoid severe COVID infections in long-term care. LinksDr Storm's Podcast: Taking Healthcare by StormFunction Calculator: Barthel Index for Activities of Daily LivingResources for COVID-19 treatment, surveillance, and vaccinations in the long-term care population: https://covid.nymda.orgArticlesNursing Home Staffing Levels and Resident Health Outcomes: Is the Role of the Physical Therapist Undervalued? Prevalence and Predictors of Persistence of COVID-19 Symptoms in Older Adults: A Single-Center StudyAudio engineering by True Media SolutionsSubscribe for more at LongCovidMD.substack.com, and follow Dr Khan on X @doctor_zeest

Send us a textWhat do you do when you just want a break from being sick? In this month's episode of The Rundown, Dr Zeest Khan shares her ongoing journey with long COVID, discussing the frustrations and challenges she faces in recovery. She reflects on the medical treatments she has undergone, the importance of reliable information, and the emotional toll of navigating the complexities of this condition. Subscribe for more at LongCovidMD.substack.com, and follow Dr Khan on X @doctor_zeest

Send us a textSign up for my newsletter to receive summaries of each podcast episode and more: LongCovidMD.substack.comDr. Melanie Hoppers is a board-certified physician in both adult and pediatric medicine, and is a consultant at the Bateman-Horne Center. In this conversation, Dr Hoppers shares her extensive experience treating children with post-viral illnesses, particularly ME-CFS and long COVID. She discusses her personal journey as a parent of a child with ME-CFS, and the challenges her family faced in finding appropriate care - challenges that parents of long COVID kids continue to face today. Dr. Hoppers emphasizes the importance of pacing, parental advocacy, and the need for better medical education on these conditions. She also outlines treatment options and encourages parents to find joy and support in their journey.Subscribe for more at LongCovidMD.substack.com, and follow Dr Khan on X @doctor_zeest

Send us a textRecord a Voice NoteSummaryIn this episode of Long Covid, MD, Dr. Zeest Khan shares personal updates from January, highlighting recent projects to educate other medical professionals on long COVID. She explains some of the ways long COVID impacts executive function and how she utilizes Speech and Language Pathology to improve cognition. She also reflects on the impact of social media on mental health and the need for community support among those affected by chronic illness. Long COVID Project ECHO presentationTimer Cube Cognitive Rehab via Speech and Language PathologySubscribe for more at LongCovidMD.substack.com, and follow Dr Khan on X @doctor_zeest

Send us a textIn this episode of Long COVID, MD, Dr. Zeest Khan shares highlights from her recent Project ECHO webinar, sponsored by the University of Utah and the Bateman Horne Center. Drawing from her personal journey and clinical expertise, she introduces actionable strategies to manage the complex and often overwhelming nature of Long COVID.Subscribe to Dr. Khan's newsletter at longcovidmd.substack.com.Subscribe for more at LongCovidMD.substack.com, and follow Dr Khan on X @doctor_zeest

Send us a textIn this conversation, Stanford psychologist and behavioral sleep specialist Dr. Hylton Molzof joins Dr Khan to discuss the complexities of sleep. They focus particularly on insomnia in chronic illness, and the role of Cognitive Behavioral Therapy for Insomnia (CBTI). They discuss the physiological stages of sleep, the impact of chronic illness on sleep patterns, and practical strategies for managing sleep-related anxiety. Dr. Molzof emphasizes the importance of adapting CBTI techniques for individuals with chronic conditions, especially in the context of long COVID. The conversation also covers the significance of sleep evaluation and the nuances of sleep restriction as a treatment method.Find printable worksheets and resources Dr Molzof has shared at https://substack.com/home/post/p-154561158?source=queue&autoPlay=falseSubscribe for more at LongCovidMD.substack.com, and follow Dr Khan on X @doctor_zeest

Send us a textHappy 2025! In this special New Year's episode of Long COVID MD, Dr. Zeest Khan reflects on an invaluable piece of wisdom from Mr. Rogers: “Look for the helpers.”Navigating Long COVID is anything but straightforward, but this timeless advice serves as a guiding principle. Dr. Khan breaks it down into three actionable steps to help you identify the assistance you need, avoid detractors, and—perhaps the hardest part—learn to receive help with grace.Resources and Links:Subscribe to Long COVID MD on Substack: longcovidmd.substack.comFeatured episodes:Don't Sleep on Your Power: Senator Lindsey Port on Long COVID AdvocacyBuilding Solutions with the Long COVID Moonshot InitiativeFollow and Support:Subscribe to stay updated on new episodes and bonus content. Let us know your thoughts, questions, and New Year's resolutions by emailing us or commenting on Substack!Subscribe for more at LongCovidMD.substack.com, and follow Dr Khan on X @doctor_zeest

Send us a textSend me a voicemail: speakpipe.com/longcovidmdIn this conversation, Dr. Khan discusses the impact of the autonomic nervous system in Long COVID, with Dr. Alba Azola, Assistant Professor of Physical Medicine and Rehabilitation at Johns Hopkins University.  Dr Azola explains the complexities of autonomic dysfunction, particularly focusing on dysautonomia and POTS, and how these conditions affect patients' daily lives. The discussion highlights the importance of a patient-centered approach in rehabilitation and the need for a multidisciplinary team to address the various symptoms and challenges faced by long COVID patients. In this conversation, Drs Azola and Khan delve into the complexities of dysautonomia, particularly in the context of long COVID and mast cell activation syndrome. They discuss the importance of understanding autonomic dysfunction, the role of mast cells in various symptoms, and the need for a collaborative healthcare approach. The conversation emphasizes non-pharmacologic interventions, the significance of tailored exercise programs, and the various medications available to manage symptoms. Ultimately, they highlight the importance of patient empowerment and finding healthcare providers who are willing to listen and collaborate.Dr Alba Azola, MD@HopkinsMECFSC@AzolaAlbaBioAssistant Professor, Departments of Rehabilitation and Physical Medicine and Pediatrics, Johns Hopkins Medical Center. Director of the Long COVID Chronic Fatigue Syndrome Clinic and Co-director of the JH-UTSW Brain Health Program. She is a co-investigator in several NIH, PCORI, and CDC-sponsored studies on Long COVID. As part of the AAPMR PASC collaborative, she has co-authored several guidance statements on managing Long COVID symptoms, including fatigue, dysautonomia, and cardiovascular complications.Subscribe for more at LongCovidMD.substack.com, and follow Dr Khan on X @doctor_zeest

Send us a textLeave me a voicemail: speakpipe.com/longcovidmdLindsey Port, who lives with severe Long COVID, represents District 55 in the Minnesota State Senate. How does she do it and to what extent can state governments impact the lives of people with chronic illness? In our conversation, Senator Port shares why she insists on disability accommodations, why it was important for her to share her Long COVID story, and why she encourages YOU to share yours.Senator Port believes that while there are valid reasons for concern as the government undergoes a transition, there are concrete reasons to remain hopeful. Learn more about Senator Porthttps://www.instagram.com/lindseyportmn/https://www.lindseyportmn.com/https://bsky.app/profile/lindseyportmn.bsky.socialSubscribe for more at LongCovidMD.substack.com, and follow Dr Khan on X @doctor_zeest

Send us a textThe United States government is in transition, and the new administration may make dramatic changes that will impact people with Long COVID, among others. In this reading of my November essay for the Long Covid MD Substack, I explain why, because I am concerned, I am not panicking. Read, subscribe and share: https://longcovidmd.substack.com/p/why-im-not-panicking?r=478j9xSubscribe for more at LongCovidMD.substack.com, and follow Dr Khan on X @doctor_zeest

Send us a textAsk me a question at speakpipe.com/longcovidmdIn this conversation, Dr. Zeest Khan and certified clinical mental health counselor Paige Zuckerman discuss the critical role of therapy for those dealing with chronic illness and Long COVID. They explore the stigma surrounding mental health, the importance of understanding grief and fear in the context of medical loss, and the potential for post-traumatic growth. The discussion also covers the renegotiation of relationships and boundaries, the significance of finding the right therapist, and the concept of allostatic load in managing chronic illness. Ultimately, they emphasize the value of community and support groups in navigating these challenges.Paige Zuckerman https://www.psychologytoday.com/us/therapists/paige-zuckerman-salt-lake-city-ut/195354Follow me on X @doctor_zeest

Send us a textRecord a voicemail: https://www.speakpipe.com/LongCovidMD How is the United States using federal funds to find a cure to Long COVID? Today, with the help of prominent guests, I reflect on the recent RECOVER-TLC workshop, which will influence the direction of Long COVID in the United States. The workshop was hosted by the National Institute of Allergy and Infectious Disease, and included presentations by scientists, clinicians, patients and advocates. It's a really big deal, but don't worry if you missed it. I'm here to catch you up on the major highlights and take-aways.Thank you to:Jon Douglas https://jondouglas.dev/longhaulJermaine Greaves https://www.instagram.com/jermainegreaves/Todd Davenport, PhD https://www.pacific.edu/campus-directory/todd-davenportAlba Azola, MD https://profiles.hopkinsmedicine.org/provider/alba-azola/2707119RECOVER-TLC Patient Input https://recovercovid.org/news/nih-invites-public-participation-inform-future-long-covid-clinical-trialsRECOVER-TLC videos https://youtube.com/playlist?list=PLqByiC0rX0ZOAlM0l0dCSefm-GvYHCBr_&si=M1YBjCm6RbvziBJ2CURE-ID https://cure.ncats.io/Follow me on X @doctor_zeest

Send us a textSend me a voicemail https://www.speakpipe.com/LongCovidMDThis is the audio voiceover for my October Substack article, an overview of my month living with Long COVIDThis month I discuss how I was took on big projects without severely crashing. We discuss the ways I pace, even when it looks like I'm pushing.Join the community on Substack. Longcovidmd.substack.comFollow me on X @doctor_zeest

Send us a textSummaryIn this conversation, Dr Zeest Khan and Visible founder Harry Leeming discuss the innovative use of biometric tracking in managing long COVID and other chronic illnesses. They explore the significance of heart rate variability (HRV), the role of wearable technology, and the importance of pacing in symptom management. The discussion also highlights the impact of the menstrual cycle on health and the resources available through Visible, a company dedicated to improving health outcomes for those with chronic conditions.MakeVisible.comFollow me on X @doctor_zeest

Send us a textToday I'm answering questions from listeners and online friends. We discuss:-How to find a Long COVID doctor-Best(?) meds to use during a COVID infection-Pediatric LongCOVID -Dental work and anesthesiaLeave me a voice note here: https://www.speakpipe.com/msg/s/371091/1/5ftvm7bekf0v0vrjSupport the show here:https://www.amazon.com/hz/wishlist/ls/5EAAQUNVKP3K?ref_=wl_shareSubstack Q&Ahttps://longcovidmd.substack.com/p/q-and-a-with-dr-k-long-covid-surgery?r=478j9xPediatric resourcesAmy Mooney: OT4ME.comBateman-Horne Center: https://batemanhornecenter.org/LongCOVDKids: https://www.longcovidkids.org/Follow me on X @doctor_zeest

Send us a textOccupational therapist Amy Mooney focuses her practice on people with fatiguing diseases like ME/CFS and Long COVID. She joins me to discuss how occupational therapy can be a valuable addition to your recovery program. Finding ways to engage in our lives, to do the things we want to do, is at the heart of occupational therapy.Amy shares how she has modified her practice to empower people with fatigue, and suggests ways you can engage with an occupational therapist near you.Amy MooneyOT4ME.comAmy is a private practice occupational therapist specializing in therapeutic care for individuals with chronic conditions involving Post-Exertional Malaise (PEM) and Post-Exertion Symptom Exacerbation (PESE). With over 25 years of OT experience, her telehealth practice focuses on conditions like Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), Long COVID, and related co-morbid conditions such as dysautonomia, Ehlers-Danlos syndrome, Mast Cell Activation Syndrome, and Fibromyalgia.Amy's “Pacing for PEM” guidelines and therapeutic strategies have been featured in national and international conferences, continuing education programs for medical professionals, and paƟent advocacy webinars. Drawing on her extensive background in diverse seƫtings, including schools, home health, and clinics, Amybrings a comprehensive understanding of paƟent needs to her practice. As a caregiver to a loved one with ME/CFS, she has a deep, personal understanding of the challenges faced by individuals and families in seekingappropriate care. Her approach is rooted in compassion, focusing on symptom management, pacing strategies, and adaptive interventions to enhance the quality of life for her clients.Amy has a bachelor's degree from Loyola University Chicago, a master's degree in occupational therapy fromRush University Chicago and is a returned Peace Corp volunteer. Amy calls Chicago home.Bateman-Horne Centerhttps://batemanhornecenter.org/Amy on YouTube with SolveMEhttps://www.youtube.com/watch?v=w5Yt0BdeeN8Follow me on X @doctor_zeest

Send Dr Khan a Text Message. Ask a question or say hi!Today I share an update on my health (all good things) and what I do to recover when I push myself too much, overdo it, and have post-exertional malaise.Follow me on X @doctor_zeest

Send Dr Khan a Text Message. Ask a question or say hi!Dr Rachel Hall-Clifford is a medical anthropologist and a global health expert who has done extensive field work to improve systemic health inequities around the world. When she developed Long Covid after an infection in 2022, those systemic failures became a personal issue. Dr Hall-Clifford wrote a powerful article on her experience with Long Covid and the role wealthy countries play in the global treatment of this disease. In our conversation, she speaks about her personal struggles and the universal need for Long Covid treatment."Long Covid Feels Like a Gun to My Head" https://www.statnews.com/2024/06/18/long-covid-infectious-disease-expert-personal-story-life-with-no-cure/"Underbelly: Childhood Diarrhea and the Hidden Local Realities of Global Health"https://mitpress.mit.edu/9780262547765/underbelly/safe+natalwww.safenatal.org Dr Hall-Clifford's TedX Talk on Co-Design in global public health: https://www.youtube.com/watch?v=rvRAdsQ1_hA Rachel Hall-Clifford (PhD, MPH, MSc) is Associate Professor in the Center for the Study of Human Health and the Department of Sociology at Emory University. She is a medical anthropologist who applies social science approaches to global health research and implementation. Her research areas include accessible health care for marginalized populations, health systems strengthening in post-genocide contexts, and global health fieldwork ethics. She is author of the new book, Underbelly, focusing on the multivalent power asymmetries in global health.  Rachel is also Co-Founder of safe+natal, a perinatal monitoring and care toolkit developed with Guatemalan midwives. Global health was brought home in a new way for Rachel since the covid infection that led to long covid in 2022. Follow me on X @doctor_zeest

Send Dr Khan a Text Message. Ask a question or say hi!LongCovidMD.substack.comLongCovidMD.comIn this episode of The Medicine Cabinet series, I explain how Metformin, a drug we often associate with diabetes, helps acute covid and may help Long Covid.Metformin is an old, relatively inexpensive medication that has many established off-label uses. I explain its mechanisms of action, who it might be right for, and I discuss the recently published COVID OUT research findings that supported metformin's use in acute infection. It reduces hospitalizations, death, and the development of Long Covid.What does that mean for those of us who already have Long Covid? I share my opinions. Research LinksCOVID OUT metformin dose used: 500mg on Day 1, 500mg twice daily on Days 2-5 and 500mg in the AM and 1,000mg in the PM on Days 6-14https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4214027/https://www.medrxiv.org/content/10.1101/2023.06.06.23290989v1https://www.thelancet.com/journals/laninf/article/PIIS1473-3099(23)00299-2/fulltext#%20https://academic.oup.com/cid/article/79/2/354/7660393?login=falsehttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC10595158/https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9111510/#:~:text=Recent%20evidence%20has%20shown%20that,has%20immunomodulatory%2C%20anti%E2%80%90inflammatory%2CCURE-ID Databasehttps://cure.ncats.io/homeSign up for the free newsletter at LongCovidMD.substack.com Follow me on X @doctor_zeest

Send Dr Khan a Text Message. Ask a question or say hi!LongCovidMD@gmail.comLongCovidMD.comThis podcast, like Long Covid, has a global reach. Whether we see one another or not, we are part of a new community. And this community, while struggling, is pretty amazing. Today I highlight the diverse location of listeners, to remind you that you are not alone in your struggle.  Did I give your town a shout-out? Did I miss it? Sign up for the free newsletter at LongCovidMD.substack.com Follow me on X @doctor_zeest

Send Dr Khan a Text Message. Ask a question or say hi!LongCovidMD.comLongCovidMD@gmail.comWhat happens when you go from running ultramarathons to having difficulty walking? Endurance runner Courtney Baker knows the answer too well. Courtney is an endurance athlete who has been navigating long COVID for three and a half years. In our conversation, she shares her experience before and after the pandemic, her ultimate diagnosis with long COVID, and the challenges she faces in managing her symptoms. She emphasizes the importance of finding a supportive community of people who understand what she's going through. Courtney also discusses the athlete mindset and how it can be both helpful and detrimental in approaching healing and recovery. She reflects on the importance of asking for help and finding balance while living with long COVID and shares her journey of learning to prioritize self-care and set boundaries. Courtney emphasizes the value of community and the support of loved ones in navigating the challenges of long COVID and encourages listeners to embrace acceptance and find joy in the midst of their struggles.Reach Out To CourtneyEmail: courtney90111@gmail.comFacebook: https://www.facebook.com/courtney.lynne.baker/Long Covid Support for Endurance Athleteshttps://www.facebook.com/groups/longcovidsupportforenduranceathletesFollow me on X @doctor_zeest

Send Dr Khan a Text Message. Ask a question or say hi!LongCovidMD.comHow has your personal identity been challenged by your Long Covid symptoms? I've spent a lot of time exploring this question and today I'm sharing what answers have come up for me.Our identity is connected to the titles we hold, and those titles are attached to values and judgements.I believe we don't have to lose ourselves when we have chronic illness, even if our world looks drastically different. How are you navigating challenges to your identity? Email me at longcovidmd@gmail.comFollow me on X @doctor_zeest

Send Dr Khan a Text Message. Ask a question or say hi!Or Email at LongCovidMD@gmail.comIn this conversation, Dr Zeest Khan discusses the characteristics of pseudoscience accounts on social media that claim to provide reliable information about Long Covid. She provides a checklist to help identify these unreliable sources, including triggering fear and anxiety, using all or none statements, selling products related to their claims, speaking outside their area of expertise, and using dense and complicated language. Zeest emphasizes the importance of verifying credentials and understanding the capacity in which the person is speaking. Sources:Dr Andrea Love https://immunologic.substack.com/How To Spot A Con Artist https://www.michigan.gov/reinventretirement/protection/investment-scams/how-to-spot-a-con-artistKeywordslong COVID, pseudoscience, social media, reliable sources, checklist, fear and anxiety, all or none statements, selling products, expertise, credentials, complicated languageFollow me on X @doctor_zeest

I want to be back to my baseline immediately, and I'm getting impatient. But the impatience itself is draining me. How do you show yourself grace? How do you love yourself through your limitations? Send me your advice. Tell me what keeps you going. Email me at LongCovidMD@gmail.comFollow me on X @doctor_zeest

Check out the new website LongCovidMD.comEmail me at LongCovidMD@gmail.comOn this installment of The Medicine Cabinet series, I tackle the use of Low-Dose Naltrexone (LDN) to treat Long Covid symptoms. Naltrexone is a fascinating drug that works one way at high doses and another way at low doses. In low doses, it can be a potent anti-inflammatory, and it may help reverse autoimmune conditions. There's a lot more to it. I explain how LDN works, who should consider it, and obstacles to access. I also share practical tips to dosing that will help you avoid, or at least understand, side effects. Links:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6313374/https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10074318/https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10862402/https://www.physio-pedia.com/Glial_CellsFollow me on X @doctor_zeest

How do we find community when we're energy-limited?  Long Covid Moonshot member Ezra Spier helps me answer this question. Ezra is an Oakland, California-based patient researcher, person with Long Covid, and creator of the website Long Covid Studies . He is a member of Long Covid Moonshot and the Patient-Led Research Collaborative. Outside of Long Covid advocacy, Ezra is an independent operations and technology consultant who helps organizations thrive through periods of growth.  We talk about advocacy, leveraging our strengths, and birds!Links:Longcovidstudies.netLongcovidmoonshot.comThe Spoonbill Club https://buttondown.email/edyong209/archive/the-eds-up-birding-for-long-haulers/Find Ezra Spierhttps://x.com/ahhrrrFollow me on X @doctor_zeest

Many people have Long Covid. Hear their voices. Podcast listener and nurse practitioner KatherineMarie shares her story.Would you like to share your story? Email me at LongCovidMD@gmail.comListen to KatherineMarie's podcast "Long Covid Real Talk"https://podcasts.apple.com/us/podcast/real-talk-about-long-covid/id1740051506Follow me on X @doctor_zeest

In all the years I practiced medicine, I didn't know much about fatigue-related conditions. While I was in the dark, researchers like Todd Davenport, Department Chair of Physical Therapy at the University of the Pacific, shed light on how fatigue affects patients with disease and even those who are healthy. In our interview, Todd shares how he and other physical therapists approach fatigue, how he saw Long Covid coming, and how to find a physical therapist who is right for you.Follow me on X @doctor_zeestFind Todd on X @sunsopeningbandTodd E. Davenport, PT, DPT, PhD, MPHTODD DAVENPORT is Professor and Chair in the Department of Physical Therapy at University of the Pacific in Stockton, California. He earned his bachelor's degrees in psychology and exercise science (sports medicine) from Willamette University in Salem, Oregon, Doctor of Physical Therapy degree from the University of Southern California in Los Angeles, California, Master of Public Health degree from the University of California at Berkeley, California, and Doctor of Philosophy in Health, Exercise, and Sport Sciences from the University of Portsmouth in the United Kingdom. Dr. Davenport is a scientific advisor to the Workwell Foundation and Chair of Long Covid Physio.Follow me on X @doctor_zeest

The incomparable science journalist David Tuller (https://crowdfund.berkeley.edu/project/42302) shares how he dissects and reports on medical research. He made a name for himself contesting the methods used in the PACE trial, a study that claimed to support the use of cognitive behavioral therapy (CBT) and exercise as a treatment for ME/CFS, but has now been debunked. He sees similarities between the approach to ME and now Long Covid. I ask David about the legacy of the PACE trial today, and how we can we trust what we read in scientific journals.David is an independent science journalist and holds a fellowship at UC Berkeley Center for Global Public Health. His position is entirely funded by donations from the public. Consider supporting his work here:  https://crowdfund.berkeley.edu/project/42302Follow me on X @doctor_zeest

Welcome to The Medicine Cabinet, a series of episodes where I pull out a pill bottle and explain why it might be used in Long Covid.Today we're covering the Paxlovid and Molnupiravir, the two antivirals currently FDA approved to treat acute covid infections, and sometimes Long Covid. They are very different drugs, with very different side effect profiles...and they're not for everyone. Learn the basics on the very first episode of the The Medicine Cabinet.What's in your medicine cabinet? What drug or supplement do you want to learn more about? Email me at LongCovidMD@gmail.com*The contents of this podcast are for educational purposes only and do not constitute medical advice. Talk to your medical professional before starting any new treatment.*Links:Molnupiravir https://www.covid19treatmentguidelines.nih.gov/therapies/antivirals-including-antibody-products/molnupiravir/Paxlovid https://www.fda.gov/media/158165/downloadFollow me on X @doctor_zeest

Season 2 is here! It's also episode #13 so for something spooky, let's talk about getting reinfected with the virus that changed your life forever. Today I discuss how my recent reinfection felt, how reinfection affected my Long Covid symptoms, and how I responded. I'll share how antivirals work, who they work best for, and who shouldn't take them. We'll also peruse the existing literature on reinfection and Long Covid. How did reinfection affect you? Email me at LongCovidMD@gmail.comLinks:https://www.fda.gov/media/158165/downloadhttps://www.pfizer.com/science/coronavirus/severe-covidhttps://www.covid19treatmentguidelines.nih.gov/therapies/antivirals-including-antibody-products/molnupiravir/https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10454552/https://www.longcovid.org/images/Documents/Reinfections_in_Long_Covid_Survey_Report_by_Long_Covid_Support_and_Long_Covid_Kids_080922.pdfFollow me on X @doctor_zeest

In the final episode of Season 1 I discuss my favorite subject, anesthesiology. I explain how anesthesia works, whether it's an injection at the dentist or general anesthesia for major surgery, and discuss how your experience with anesthesia might change now that you have Long Covid. Expect a break in episodes while I prepare Season 2.  It's going to be bigger, bolder and even more informative. Follow me on X to stay updated.LinksMy article about Long Covid for the California Society of Anesthesiologistshttps://csahq.org/2022/06/13/experiencing-long-covid-as-a-physician-and-a-patient/Follow me on X @doctor_zeest

We doctors are an odd bunch, I will admit, but the medical system is even more odd. It's complicated, it's constricting, and the business of medicine infiltrates the patient-physician relationship.  Most doctors are as unhappy about this as you are. Today I explain the constraints doctors work within that directly affect your experience as a patient, and how to work within these constraints to make the most out of your doctor visits. Links:Why Doctor Visits Are So Shorthttps://www.kevinmd.com/2014/05/10-minutes-doctor.htmlChanges in Patient Outcomes Associated With Private Equity Acquisitionhttps://jamanetwork.com/journals/jama/article-abstract/2813379Physician Burnout https://jamanetwork.com/journals/jamanetworkopen/fullarticle/2810256Follow me on X @doctor_zeest

Some significant news hit the press this week, with significant backlash. Today I explain the news, the backlash, and how I stay up to date on Long Covid without getting swept up in the response. Emotions are important and require energy, so I share my step-by-step approach to processing heavy events without damaging my recovery. What do you think? Email comments to LongCovidMD@gmail.comLinksDeep Phenotyping of Post-Infectious Myalgic Encephalomyelitishttps://www.nature.com/articles/s41467-024-45107-3David Tuller, Virology Blog, Interview with Neuroscientist Michael VanElzakkerhttps://virology.ws/2024/02/28/trial-by-error-an-interview-with-neuroscientist-michael-vanelzakker-about-the-just-published-and-long-awaited-nih-study/CDC Updated Covid Isolation Guidelineshttps://www.cdc.gov/respiratory-viruses/background/index.htmlAshish Jha's X posthttps://x.com/ashishkjha/status/1763661662739943810?s=20Happiness Lab Podcasthttps://www.pushkin.fm/podcasts/the-happiness-lab-with-dr-laurie-santosFollow me on X @doctor_zeest

America hasn't found a cure or even a treatment for Long Covid. Today I explain why. It's about money, but it's more complicated than just money.Links:RECOVER https://recovercovid.org/https://www.statnews.com/2023/08/09/long-covid-nih-trials/#:~:text=Among%20the%20trials%20announced%20so,along%20with%20several%20behavioral%20options.AHRQ  https://www.ahrq.gov/coronavirus/long-covid.htmlPAHPA https://aspr.hhs.gov/legal/pahpa/Pages/default.aspxFollow me on X @doctor_zeest

Congressional support for Long Covid research influences all of us, but can be hard to understand. I researched so you don't have to, and in this episode I tell you what I've learned.On January 18, 2024 the US Senate HELP Committee held a hearing "Addressing Long Covid: Advancing Research and Improving Patient Care." I'll explain the who/what/where and why and explain what Long Covid research funding exists today. Follow me on X @doctor_zeestLinks:https://www.help.senate.gov/hearings/addressing-long-covid-advancing-research-and-improving-patient-careBernie Sanders Op-Ed: "US Is Turning its Back on Long Covid"https://www.usatoday.com/story/opinion/voices/2024/01/26/long-covid-paxlovid-costs-plaguing-american-healthcare/72337750007/Senators Kaine/Young/Inhoff Advocate for LChttps://thehill.com/opinion/congress-blog/4181662-after-the-pandemic-ends-long-covid-still-needs-congressional-attention/Young, Kaine Introduce Bill to Support Americans Living with Long Covidhttps://www.young.senate.gov/newsroom/press-releases/young-kaine-introduce-bill-to-support-americans-living-with-long-covidRECOVER Initiativehttps://recovercovid.org/AHRQ funding for Long Covidhttps://www.ahrq.gov/coronavirus/long-covid.htmlLong Covid Moonshothttps://longcovidmoonshot.com/Long Covid Action Project Media Releasehttps://longcovidactionproject.com/long-covid-activists-disrupt-senate-hearing/Follow me on X @doctor_zeest

Welcome 2024! This is NOT another new years resolution list. Instead, I discuss the priorities I set for myself to support my recovery and make the most of my resources. Some of them require action around the new year, some of them require reflection throughout the year. On this episode, I share 5 of the things I am doing around the New Year to protect my health and continue my recovery from Long Covid.I want to hear from you! Email me at LongCovidMD@gmail.comFind me on X @doctor_zeest

It's easy to feel out of touch with Long Covid science.  Recently, three of the most prestigious Long Covid researchers updated a group of prestigious physicians on this very topic. Lucky for us the meeting was recorded and shared. Lucky for you, I've summarized it and translated the medical jargon.  In this episode I summarize the words of Drs Ziad al-Aly, Michael Peluso and Akiko Iwasaki, as they presented their research to a group of physicians at UCSF. The meeting, Internal Medicine Grand Rounds was held on December 14, 2023 and was moderated by department Chair Dr Bob Wachter. The scientists each discuss their groundbreaking Long Covid findings, their current research studies, and their predictions for the future.  I did my best to present their work in a way that is accurate and accessible to everyone.  Email me at LongCovidMD@gmail.comWatch the original meeting on YouTube at: https://www.youtube.com/watch?v=rMt6ZV-hHSE

I got sick, on top of being sick. So today we take a side journey to discuss what it takes to bounce back from a crash, and how I deal with the uncertainty of life with Long Covid. What do you think about when you're sick in bed? Today I'll tell you what I think about, and it's not always fun. I discuss motherhood, how the ghosts of my patients live with me, and how my friends are literally a part of my recovery plan. Grab a cup of tea and get in your feelings with me. I've never gotten so personal.Email me at LongCovidMD@gmail.comTwitter.com/doctor_zeest

Today's episode kicks off a series that will help you become an discerning patient.  How much do you know about the health professionals taking care of you?  Do you really understand the training of different hospital staff?  On today's episode, I teach you how to read a hospital badge. I explain the difference between MD and DO, tell you if an APRN is the same thing as a nurse practitioner, and describe what an MA does. I'll also share which health care professionals you probably need but don't know about. Listen to find out!Email me at LongCovidMD@gmail.comFind me on X @Doctor_ZeestDisclaimer: While the host is a licensed physician, listening to this podcast does not establish a patient-physician relationship. The contents are the host's opinions and do not constitute medical advice.

Today's episode I share the lessons I learned during my medical career that have helped my recovery. It includes an exercise you can do to clarify your symptoms and better communicate with your own doctor.Find me on Twitter/X  @doctor_zeestEmail me at LongCovidMD@gmail.com

Today I talk about grief, the definitions of and similarities between Long Covid and Myalgic Encephalomyelitis, and my Long Covid story. References:https://www.cdc.gov/me-cfs/pdfs/Could-You-Have-MECFS_508.pdfhttps://www.covid.gov/longcovid/definitionshttps://jheor.org/post/1746-economic-effects-of-long-covid-even-larger-than-we-thought