Friends For Life Podcast

Megan Bomgaars is a trailblazing advocate, entrepreneur, and star of the Emmy-winning show Born This Way. Born with Down syndrome, Megan rose to national prominence through her viral video Don't Limit Me, where she passionately called for inclusion, opportunity, and respect for people with developmental disabilities. Her message has inspired millions: see potential, not limitations. In this video, we explore Megan's journey—from public speaking and fashion design to business ownership and national advocacy. Megan continues to challenge stereotypes and redefine what it means to live boldly with a disability. #MeganBomgaars #DontLimitMe #BornThisWay #DownSyndromeAwareness #DisabilityAdvocate #InclusionMatters #DevelopmentalDisabilities #Inspiration #DisabilityRepresentation #SpecialNeedsAdvocate

In this episode, Tony Stuart, CEO of Friends for Life, shares practical, experience-based strategies for individuals with developmental disabilities looking to increase their waiver hours. With over 20 years in the field, Tony explains why using your current waiver is essential, how to properly document medical and functional changes, and how incident reports can influence approval for more support. He also discusses the importance of realistic hour requests, the value of waiver add-ons, and the role of agency providers in advocating for increased care. Whether you're a provider or someone receiving services, this episode is packed with crucial insights that can help you navigate the waiver process more effectively. Are you or someone you support working to increase waiver hours? Tune in and learn how to advocate for the care and support you deserve.

Zack Gottsagen is breaking barriers and reshaping Hollywood. In this inspiring video, we explore Zack's groundbreaking journey as an actor with Down syndrome—from his unforgettable leading role in The Peanut Butter Falcon alongside Shia LaBeouf and Dakota Johnson to making history as the first person with Down syndrome to present at the Academy Awards. Zack's story is more than a personal triumph—it's a cultural milestone. He's a powerful example of what happens when talent, determination, and true inclusion come together. By pursuing his dream despite all odds, Zack has shown the world that people with developmental disabilities deserve not only visibility but respect and opportunity in the entertainment industry and beyond. Join us as we celebrate Zack Gottsagen's legacy and the vital message he shares with the world: representation matters.

On this episode of IDD Health Matters, Dr. Craig Escudé sits down with two remarkable nurses—Patty Haberkorn and Deanna Cox—at the Illinois Developmental Disabilities Nurses Conference. With a combined four decades of experience supporting people with intellectual and developmental disabilities (IDD), Patty and Deanna share powerful insights into nursing, advocacy, communication, and the often-overlooked emotional rewards of this career path. Patty, who began her journey as a nurse and now serves as Executive Director at Futures Unlimited, and Deanna, a dedicated nurse who found her calling in DD care after working in long-term care, both reflect on how they "fell into the field" and stayed out of passion. They open up about the gaps in nursing education regarding IDD, the importance of understanding non-verbal communication, and the critical role of baseline behavior in diagnosing health issues. This episode covers: The value of advocacy from nurses and direct support professionals Real-world challenges in educating physicians and gaining respect for individuals with IDD Why knowing a person's baseline behavior is crucial for accurate medical care The emotional connection between care staff and the individuals they support Staffing and funding challenges in the IDD sector—and why passion still keeps them going Whether you're a nurse, DSP, administrator, or someone curious about working in disability services, this conversation offers heartfelt stories and essential wisdom about the importance—and joy—of working in this field.

In this episode of the Friends for Life Podcast, Tony Stuart—CEO of Friends for Life and a veteran Direct Support Professional with over 20 years of experience—explores a critical but often overlooked skill in the field: emotional intelligence. Tony shares personal stories and practical insights on how DSPs can better connect with the individuals they support by being more self-aware, empathetic, and emotionally responsive. From learning to truly listen without reacting, to knowing when to be vulnerable, Tony offers a raw and honest look at what it means to support someone beyond just the task list. Whether you're a new DSP or have been in the field for years, this conversation is a must-listen for anyone looking to deepen their impact and build more meaningful relationships in disability services. Topics Covered: Signs of lacking emotional intelligence as a DSP How emotional reactions can damage trust The importance of asking “How are you?”—and meaning it Balancing vulnerability and professionalism Why timing is everything in emotional communication

Ludwig van Beethoven's legacy goes far beyond his music—it's a powerful testament to the strength of the human spirit. Though he began to lose his hearing in his late 20s, Beethoven refused to let disability define him. Instead, he found new ways to compose, using vibration, intuition, and innovation to craft some of the most iconic works in classical music history. In this inspiring video, we explore how Beethoven overcame his profound hearing loss to create masterpieces like the Ninth Symphony, whose Ode to Joy remains a global symbol of hope and unity. Beethoven's life proves that genius and creativity are not limited by physical ability. His story continues to inspire millions, showing us that true greatness lies in perseverance, passion, and the refusal to be silenced.

In this inspiring episode of IDD Health Matters with Dr. Craig Escudé, we welcome Tony Thomas, Executive Director of Welcome House in Cleveland, Ohio. With over 24 years of leadership experience, Tony shares his remarkable journey into the field of intellectual and developmental disabilities (IDD) — from a life-changing family discovery to a lifelong career dedicated to empowering individuals and advancing health equity. Tony discusses how frontline Direct Support Professionals (DSPs) are the heart of the disability services field, his innovative initiatives to improve healthcare access for people with IDD, and how Welcome House is creating clear career pathways for DSPs, including specialized medical support roles. He also talks about the urgent need to address workforce shortages and improve wages for caregivers. If you're passionate about making a difference, building a meaningful career, or learning how true inclusion transforms lives, this episode is packed with wisdom, hope, and practical ideas for the future of IDD services.

Are you feeling burnt out as a Direct Support Professional (DSP) or caregiver? You're not alone. In this episode of the Friends for Life Podcast, Tony Stuart — with over 20 years of experience in the field — opens up about the tough reality of burnout. From working endless hours, juggling personal responsibilities, and striving to serve others, Tony shares how even the most passionate advocates can hit their limits. He discusses his recent health wake-up call, the hidden factors that contribute to burnout, and why self-awareness is crucial for long-term success in the caregiving profession. If you've ever wondered why burnout seems inevitable — and how to recognize and prevent it — this candid conversation offers personal insight, hard-earned lessons, and encouragement to prioritize your well-being while continuing to support others. Tune in and take a moment for yourself — because taking care of others starts with taking care of you.

Frida Kahlo, the legendary Mexican painter, is celebrated not only for her vivid and emotionally raw self-portraits but also as a timeless icon of disability pride and resilience. From childhood polio to a catastrophic bus accident at 18, Kahlo endured lifelong physical pain and countless surgeries—yet she transformed that suffering into some of the most powerful artwork of the 20th century. In this episode, we explore how Frida used her chronic pain and disability as fuel for creativity, boldly redefining what beauty, identity, and strength look like. Her unapologetic self-expression and refusal to conform to societal expectations continue to inspire people around the globe—especially those living with disabilities. Join us as we celebrate the life, art, and lasting impact of Frida Kahlo—an artist whose legacy proves that pain does not limit power, and disability does not diminish vision.

In this episode of IDD Health Matters, Dr. Craig Escudé sits down with Dr. Alice Bacherini, a postdoctoral research fellow at the University of Perugia in Italy, to explore how psychological research is helping dismantle biases in healthcare for people with intellectual and developmental disabilities (IDD). Dr. Bacherini discusses her groundbreaking work developing tools to measure erroneous assumptions and self-efficacy among physicians when treating individuals with IDD. Together, they dive into how clinician attitudes impact health equity, the role of social dominance orientation in perpetuating stereotypes, and why direct interaction and inclusive communication are essential to better care outcomes. Tune in to hear why IDD-specific training—especially hands-on experiences—can shift perspectives and improve quality of care. Dr. Bacherini also shares where to find her published scale, the Beliefs About Adults with ID (BAAID), and her three key pieces of advice for creating a more inclusive healthcare system. Learn more at: replacingrisk.com Career opportunities with Friends for Life: friendsforliferc.com

In this thought-provoking episode of the Friends for Life Podcast, host Tony Stuart—CEO of Friends for Life and a DSP with over 20 years of experience—dives into the complex realities of supporting individuals with developmental disabilities (DD). Are we truly helping the people we serve, or are we sometimes just putting a band-aid on deeper issues? Tony explores the contradictions in the field, particularly when it comes to accountability, behavioral challenges, and the importance of consistent consequences. Drawing from real-world experience, including time spent navigating court systems and difficult behavioral interventions, Tony challenges the one-size-fits-all mindset and calls for a more nuanced, team-based approach. Whether you're a DSP, administrator, or family member, this episode offers valuable insight into creating sustainable, individualized support through collaboration and honest communication. Brought to you in part by IntellectAbility, Assured Health Services, Reliable Drug & Alcohol Testing, and THS Remote Supports.

In this inspiring episode, we explore the extraordinary life and legacy of Stephen Hawking—a brilliant physicist whose mind reshaped our understanding of the universe, even as his body battled the devastating effects of ALS. Diagnosed at just 21 and given only a few years to live, Hawking defied the odds for decades, contributing groundbreaking work to cosmology, black hole theory, and the nature of time. Through his best-selling book A Brief History of Time and countless lectures powered by a computerized voice system, Hawking proved that physical limitations cannot contain the power of human thought. His journey is more than a scientific triumph—it's a symbol of resilience, determination, and the unbreakable human spirit. Whether you're interested in science, disability advocacy, or simply need a reminder of what's possible in the face of adversity, this episode is a must-watch.

In this powerful episode of IDD Health Matters, Dr. Craig Escudé sits down with longtime civil rights attorney, disability advocate, and former Acting Administrator of the Administration for Community Living, Alison Barkoff. Now serving as the Hirsch Health Law and Policy Professor at George Washington University's Milken Institute School of Public Health, Alison shares her personal journey rooted in her experiences as a sibling of a person with an intellectual disability—and how that shaped her life's mission to advance health equity, civil rights, and inclusion for people with intellectual and developmental disabilities (IDD). Together, they explore: The historic update to Section 504 of the Rehabilitation Act—modernizing anti-discrimination protections in healthcare for the first time in nearly 50 years. The hard truths about ableism, medical bias, and discriminatory crisis standards of care exposed during the COVID-19 pandemic. The urgent need to incorporate clinical care curricula into medical and health professional training to eliminate health disparities for people with IDD. The challenges of navigating a fragmented service system—and why it's still worth the fight. Alison also shares her top three calls to action for improving the lives of people with IDD: building personal connections, embracing inclusive healthcare reform, and confronting the systemic complexity with commitment and compassion. If you're a healthcare professional, policymaker, or advocate looking to better understand the intersection of disability rights, healthcare, and public policy—this is an episode you don't want to miss.

Is practical intelligence the secret ingredient missing from your workplace? In this episode of the Friends for Life Podcast, host Tony Stuart—CEO of Friends for Life and a DSP with over 20 years of experience—dives into what it *really* means to think practically in the world of disability services. Forget the clichés about "common sense." Tony breaks down how true practical thinking is rooted in logic, personal accountability, and understanding your own strengths. You'll hear real talk about: - Why not every DSP or supervisor operates the same way—and why that's okay - How to handle disciplinary action with maturity and strategy - The dangers of asking for roles you're not ready for (and how to get there instead) - What taking it "on the chin" really looks like in a high-stress caregiving environment - Why self-awareness and humility are crucial in human services Whether you're a DSP, agency provider, or administrator, this episode challenges you to rethink how you operate, communicate, and grow within the system—all in service of the people who rely on you most.

Once known around the world as Superman, Christopher Reeve became a true symbol of strength and resilience after a tragic accident in 1995 left him paralyzed from the neck down. Rather than retreat from the public eye, Reeve transformed his adversity into a powerful mission—advocating for spinal cord injury research and championing the rights of people with disabilities. Through the Christopher & Dana Reeve Foundation, he became a leading voice for change, working to improve access to medical care, technology, and independence for millions. His unwavering determination sparked national conversations about inclusion, accessibility, and what it truly means to be a hero. In this video, we reflect on Christopher Reeve's extraordinary journey—his advocacy, public speaking, directing, and continued impact long after his acting career. His famous words still echo: “A hero is an ordinary individual who finds the strength to persevere and endure in spite of overwhelming obstacles.” Reeve's story reminds us that disability isn't the end—it's the beginning of a new chapter filled with hope, purpose, and lasting legacy.

In this powerful episode of IDD Health Matters, Dr. Craig Escudé sits down with renowned disability advocate Liz Weintraub to explore what true health equity looks like for people with intellectual and developmental disabilities (IDD). Liz, a senior policy specialist at the Association of University Centers on Disabilities (AUCD), brings her lived experience and professional expertise to the conversation—sharing insights on advocacy, accessible healthcare, and the importance of plain language in medical settings. Liz discusses AUCD's national impact through 62 university-based centers across the U.S. and territories, her work on Capitol Hill, and key legislative priorities like ending subminimum wage (14c) and expanding home and community-based services. She also opens up about her own healthcare journey after a diabetes diagnosis, emphasizing the need for clear communication and respect for patient autonomy. Listeners will also learn about Tuesdays with Liz: Disability Policy for All, Liz's YouTube show that makes complex policy issues accessible to everyone. She shares how self-advocacy helped her transition out of institutional care and inspired her to empower others to do the same. Tune in to hear Liz's three essential tips for improving healthcare for people with IDD and why her message of "healthcare for all" is more important than ever.

In this heartfelt and honest episode of the Friends for Life Podcast, Tony Stuart returns to share what it's really like to juggle the responsibilities of being both a dedicated Direct Support Professional (DSP) and a parent. From moments of overwhelming frustration to unexpected joy, Tony gets real about the challenges many DSPs face—especially those who are single parents or working long hours to make ends meet. He opens up about the emotional toll of trying to be present at work while worrying about sick kids at home, the guilt that can creep in, and how essential it is to remember your why—both for your family and for those you support. But it's not all struggle—Tony also shares beautiful stories of bringing his children along to events and how DSP work can actually teach valuable life lessons to the next generation. Whether you're a parent working in the field, an agency leader, or someone considering a career in direct support, this episode is a must-watch. You'll walk away with inspiration, insight, and a deeper appreciation for the unsung heroes who keep showing up, day after day.

Franklin D. Roosevelt, the 32nd President of the United States, is remembered not only for leading the nation through the Great Depression and World War II, but also as a powerful symbol of perseverance for people with disabilities. Diagnosed with polio at the age of 39, Roosevelt was left permanently paralyzed from the waist down—yet he rose to the highest office in the land. In this inspiring video, we explore how FDR's physical limitations did not stop him from becoming one of the most influential leaders in American history. Through the use of leg braces, wheelchairs, and the support of aides, he maintained a commanding public presence. But behind the scenes, it was his resilience, determination, and deep compassion—shaped in part by his own experiences with disability—that truly defined his leadership. Roosevelt's legacy reminds us that disability is not a disqualifier for greatness. His story is a beacon of hope for anyone facing adversity, showing that with courage and resolve, it's possible to overcome obstacles and leave a lasting impact on the world.

Stevie Wonder is not just a musical legend—he's also a powerful advocate for disability rights and inclusivity. Born Stevland Hardaway Judkins in 1950, Wonder lost his sight due to complications from premature birth. Despite this, he became a child prodigy, signed to Motown Records, and went on to revolutionize music with his soulful voice, innovative compositions, and socially conscious lyrics. Beyond his musical genius, Wonder has used his platform to push for legislative change, promote accessibility, and inspire millions. He played a key role in advocating for the establishment of Martin Luther King Jr. Day as a national holiday, demonstrating his commitment to civil rights and equal opportunities for marginalized communities, including people with disabilities. He was also a strong supporter of the Americans with Disabilities Act (ADA), which was signed into law in 1990, ensuring legal protections against discrimination in employment, transportation, and public accommodations. As a blind musician, Wonder has championed adaptive technology in the music industry, encouraging the development of tools that allow blind and visually impaired artists to compose and record their work. His advocacy has paved the way for greater accessibility in the arts. Perhaps most importantly, Stevie Wonder's life and career prove that disability does not define potential. Through his activism, music, and influence, he has not only transformed the entertainment industry but also advanced disability rights and awareness worldwide.

In this inspiring episode of IDD Health Matters, Dr. Craig Escudé is joined by Dr. Ben Warner, a healthcare professional whose unique journey spans from dental practice to medical school—all fueled by a lifelong desire to serve those with the greatest needs. Dr. Warner shares how his early experiences volunteering in hospitals sparked a deep commitment to healthcare and how that commitment evolved from dentistry to medicine. His story is one of resilience, family support, and a calling to provide equitable, compassionate care for individuals with intellectual and developmental disabilities (IDD). Now a board member of the American Academy of Developmental Medicine & Dentistry (AADMD), Dr. Warner discusses his role in advancing the mission of healthcare equity, and how his work has consistently centered around improving access and quality of care for people with complex health needs. Tune in to hear Dr. Warner's three key takeaways for improving healthcare: recognizing that we are all patients, prioritizing care for those with the greatest needs, and embracing the importance of service and cooperation in creating a better healthcare system for all. Learn more about AADMD at aadmd.org and explore tools to enhance health equity at replacingrisk.com. This podcast is a joint production between Friends for Life and IntellectAbility. Visit friendsforliferc.com to explore career opportunities in the IDD field.

In this episode of the Friends for Life Podcast, Tony Stewart breaks down everything you need to know about the essential paperwork involved in starting and running an agency provider business in the DD (Developmental Disabilities) world. From policies and procedures to tax documentation, injury reports, training logs, communication methods, and even thank-you cards for your team — Tony dives deep into the practical, real-world knowledge that every provider should know. Whether you're just getting started or looking to level up your operations, this video is packed with valuable tips to help you stay organized, compliant, and ready for success.

In this episode of IDD Health Matters, Dr. Craig Escudé sits down with Richard Chapman, Assistant Director for Disability Leadership at the Partnership for People with Disabilities in Richmond, Virginia. With a background in mental health counseling and a deep commitment to advancing equity, Richard shares his journey and current work at the intersection of mental health and self-determination for people with intellectual and developmental disabilities (IDD). Richard dives into how increasing self-determination—the ability for individuals to make their own life choices—can lead to better mental health outcomes and an improved quality of life. He discusses his current research, supported by the National Research Consortium on Intellectual Disability and Mental Health, which aims to show a causal relationship between self-determination and reduced psychopathology. Throughout the conversation, Richard highlights the importance of inclusion, cautions against the overuse of polypharmacy, and advocates for restraint-free support systems. He emphasizes that people with IDD not only deserve access to psychotherapy but also thrive when they're empowered to make their own decisions. Don't miss this powerful discussion on redefining support systems, challenging outdated models, and building a more equitable future for people with IDD.

In this special solo episode of the Friends for Life Podcast, host Tony Stuart goes deep on a topic that's been buzzing in the DD (Developmental Disabilities) field—starting your own agency or becoming an independent provider. Tony lays out the real-life challenges, hard truths, and important steps involved in launching a successful agency—from understanding your "why", choosing between becoming an independent provider or opening an agency, and navigating the complex startup process, including Medicaid applications, staffing ratios, office setup, and more. If you're thinking about becoming your own boss in this field just to "get away from a bad job" or chase money, Tony gives a reality check. But if your heart is in the right place and you're truly passionate about providing excellent care, this episode is packed with insight, actionable advice, and honest encouragement.

In this episode of the IDD Health Matters Podcast, Dr. Craig Escudé sits down with Eddie Tuduri, a world-class drummer whose career included playing with legends like The Beach Boys, Loggins & Messina, Del Shannon, and Ricky Nelson. But in 1997, a life-altering accident left him paralyzed—an event that ultimately led him to create the Rhythmic Arts Project (TRAP), a groundbreaking program that uses rhythm and percussion to enhance learning, communication, and rehabilitation for individuals with intellectual and developmental disabilities (IDD). Eddie shares his inspiring story of resilience, the impact of music in therapy, and how his passion for drumming transformed into a global movement. He and Dr. Escudé discuss the importance of presuming competence, staying inquisitive, and the power of volunteering in making a meaningful impact on the lives of people with disabilities.

Becoming a DD provider isn't just a career—it's a lifestyle that demands deep commitment and sacrifice. In this episode, Tony Stuart, CEO of Friends for Life, draws from over 20 years in the IDD field to break down the realities of this work. From missing family events and losing sleep to struggling with income stability and sacrificing personal time, Tony candidly discusses the challenges that come with dedicating yourself to serving individuals with disabilities. If you've ever considered starting an agency or working in the DD field, this episode is a must-listen. Are you ready to make the sacrifices needed to truly make a difference? Tune in now and join the conversation!

In this episode of IDD Health Matters, Dr. Craig Escudé sits down with Rachel Potts, a dedicated nurse and Director of Nursing for ICF homes, to discuss the challenges and rewards of providing healthcare for individuals with intellectual and developmental disabilities (IDD). Rachel shares her journey into the field, beginning as a school nurse for children with autism, and how she quickly developed a passion for understanding and communicating with non-verbal individuals. Throughout the conversation, Rachel and Dr. Escudé explore the critical need for better training and resources for healthcare professionals, the importance of observation skills in diagnosing health concerns, and the role of direct support professionals (DSPs) in advocating for individuals with IDD. Rachel also shares real-world experiences, including a powerful story about learning to recognize subtle health cues that might otherwise be overlooked. Tune in to learn about the barriers in IDD healthcare, the importance of collaboration between providers, and how simple tools—like augmentative communication apps—can make a big difference. Whether you're a healthcare provider, caregiver, or advocate, this episode offers valuable insights into improving healthcare equity for people with IDD.

n this episode of the Friends for Life Podcast, CEO Tony Sttuart tackles an important and often overlooked question: Can you lose your IO waiver? While losing a waiver is uncommon, it can happen—most often due to underutilization of services. Tony breaks down the reasons behind this, the implications for individuals relying on these services, and what can be done to avoid losing access to crucial support. The discussion delves into the state's perspective on waiver funding and the push for greater independence among individuals with disabilities. With the rise of remote support services, there's an increasing focus on reducing one-on-one direct care in favor of technology-driven solutions. But what happens when someone becomes too independent and stops using their allocated hours? Tony explains the risks, including the long and difficult process of reapplying for a waiver if it is lost. Additionally, Tony provides practical advice on selecting the right provider to meet individual needs, covering the key questions to ask during the agency selection process. Not all providers specialize in the same areas—some excel in medical care, others in community outings or behavioral support—so finding the right fit is essential. Whether you're a waiver recipient, a caregiver, a DSP, or simply someone looking to understand the ins and outs of waiver services, this episode offers valuable insights to help navigate the system and ensure ongoing access to support.

In this episode of IDD Health Matters, Dr. Craig Escudé sits down with Chris Helfrich, a dedicated nurse and an integral member of the Developmental Disabilities Nurses Association, live from the DDNA annual conference in New Orleans. Chris shares her unexpected journey into the field, her experiences navigating healthcare for individuals with developmental disabilities, and the critical need for better education and training for healthcare providers. Chris also discusses her groundbreaking work in Illinois, where she has been instrumental in opening specialized community-based homes for individuals with Prader-Willi syndrome. She highlights the challenges of healthcare disparities, the importance of structured environments for individuals with unique needs, and the inspiring impact of these initiatives on both individuals and staff. Tune in for an insightful conversation about the evolving landscape of healthcare for people with IDD, the strides being made in nursing education, and what the future holds for better, more inclusive healthcare solutions.

In this episode of the Friends for Life Podcast, Tony Stuart dives into the importance of emotional intelligence in the field of developmental disabilities (DD) and beyond. He explores how self-awareness, empathy, and adaptability play a crucial role in supporting individuals with disabilities, emphasizing the need to truly listen, affirm feelings, and respond with kindness. Tony shares personal experiences and insights on how emotional intelligence impacts not only professional interactions but also personal relationships, parenting, and navigating the complexities of society. He breaks down key strategies for DSPs, SSAs, and administrators to cultivate emotional intelligence, ensuring they can connect with and support those they serve more effectively. Whether you're in the DD field or just looking to improve your emotional awareness, this episode is packed with valuable takeaways. Tune in and start building better connections today! #EmotionalIntelligence #DevelopmentalDisabilities #FriendsForLife #Podcast #Empathy #ListeningSkills

In this episode of the Friends for Life Podcast, we explore the incredible journey of Stevie Wonder, a musical legend who defied the odds and reshaped the industry despite being blind. From his early days as a child prodigy to his groundbreaking use of technology and activism for disability rights, Stevie's story is one of perseverance, innovation, and inspiration. Tune in as we discuss how his talent, determination, and advocacy continue to break barriers and inspire millions worldwide.

In this dynamic episode of the IDD Health Matters Podcast, Dr. Craig Escude sits down with Bob Sattler—whose extensive experience and passion for person-centered care have transformed developmental disability services. Recorded live at the NASD Conference in Portland, Oregon, this conversation delves into Bob's unique journey from a camp counselor and direct support professional to a pioneering consultant and co-founder of Support Development Associates (SDA). Bob Satler shares how his career evolved alongside the movement toward true person-centered practices, emphasizing that treating individuals as people first is far more than a buzzword—it's a transformative approach that empowers both service recipients and their support teams. He explains how effective person-centered care involves not only ensuring safety and health but also fostering autonomy, fulfillment, and genuine quality of life. Through real-life examples and insights from his work, Bob highlights the importance of listening to the very people whose lives are at the heart of these services, and the challenges of reshaping organizational cultures to make person-centeredness the norm. Join Dr. Escude and Bob Sattler as they explore the balance between safety and autonomy, discuss innovative strategies to integrate person-centered practices into everyday operations, and envision a future where support systems are as dynamic and compassionate as the people they serve. Tune in for an enlightening conversation that promises to inspire professionals and advocates dedicated to advancing health equity for individuals with intellectual and developmental disabilities.

In this candid episode of Friends for Life with Tony Stuart, Tony dives into one of the most challenging decisions in workforce management—terminating employment for Direct Support Professionals and administrators. Drawing on over 20 years of experience, he explores the delicate balance between maintaining high standards and recognizing the human element in every workplace decision. Tony unpacks: The Emotional Side of Termination: How emotional intelligence plays a key role, even when policies seem clear-cut. When to Draw the Line: Real-world indicators, from repeated infractions to critical health and safety concerns, that signal it might be time to part ways. Beyond the Policy: Why understanding personal accountability and the nuances of workplace relationships (yes, even dating among co-workers) is essential for fair and effective discipline. Join Tony as he shares practical strategies, reflective questions, and personal insights that challenge traditional disciplinary methods. Whether you're managing a team in a sensitive environment or seeking to refine your leadership approach, this episode offers thoughtful guidance on making those tough decisions with both compassion and confidence.

In this episode of the Friends for Life Podcast, we dive into the alarming news that over 700,000 people in Ohio could lose Medicaid due to proposed budget cuts. For individuals with developmental disabilities, Medicaid isn't just healthcare—it's a lifeline. These cuts could mean the loss of essential home and community-based services, personal care assistance, and access to specialized therapies that promote independence and quality of life. We discuss how these changes could increase institutionalization, place overwhelming strain on caregivers and families, and lead to devastating gaps in necessary medical care. With Medicaid already stretched thin, what would happen to the thousands of people who rely on it for daily support? Join us as we break down the real impact of these proposed budget cuts and explore why protecting Medicaid is crucial for people with disabilities. If you care about inclusion, independence, and fair access to healthcare, this is an episode you won't want to miss.

In this episode of the IDD Health Matters Podcast, Dr. Craig Escudé sits down with John Silfies, keynote speaker at the Kansas InterHab Conference and founder of Silfies Media, a company dedicated to making the developmental disabilities (DD) field famous. John shares his journey from Direct Support Professional (DSP) to marketing expert, emphasizing the power of storytelling in raising awareness, attracting new professionals, and celebrating the lives of individuals with disabilities. He discusses how his media company helps provider agencies, government organizations, and local communities by crafting impactful videos and social media campaigns that highlight the real stories and achievements within the IDD field. Throughout the conversation, John and Dr. Escudé explore the importance of mental health and gratitude in a field that is often stressful but deeply rewarding. They discuss how sharing stories fosters connection, increases retention among DSPs, and strengthens community support for IDD services. John also shares a powerful success story of how his company's videos have helped counties pass critical funding levies and amplified the voices of individuals with disabilities, proving that visibility and awareness can drive real change. Tune in for an inspiring conversation about the impact of storytelling, the importance of celebrating even the smallest victories, and the dedication of those working in the IDD field.

In this episode of the Friends for Life Podcast, host Tony Sttuart, CEO of Friends for Life, tackles a tough question: Is the disability field doomed? With ongoing political shifts, threats to Medicaid funding, and the inconsistent distribution of resources, the future of disability services remains uncertain. Tony dives into the challenges DSPs face, from stagnant wages to healthcare concerns, and highlights the importance of staying informed and advocating for sustainable solutions. Using the Toledo Water Crisis as a powerful analogy, he emphasizes the need for preparedness and unity in uncertain times. Join the conversation and share your thoughts—how do you see the future of disability services unfolding? Don't forget to subscribe, like, and follow for more critical discussions.

In this episode, we explore the incredible life and legacy of Stephen Hawking, one of the greatest scientific minds of our time. Despite being diagnosed with ALS at just 21, Hawking defied all odds, revolutionizing our understanding of black holes, the Big Bang, and the nature of time. His groundbreaking theory on Hawking radiation reshaped modern physics, while his best-selling book, A Brief History of Time, made complex science accessible to the world. Beyond his research, Hawking became a global icon, proving that physical limitations do not define one's potential. Join us as we dive into his remarkable journey, his contributions to science, and the lasting inspiration he left for future generations.

On this episode of IDD Health Matters, Dr. Craig Escudé sits down with Johnathon Crumley, Chief Operations Officer of IntellectAbility, to discuss his unexpected journey into the field of intellectual and developmental disability (IDD) support. Originally planning a career as a military chaplain, Jonathan's path shifted when he discovered his passion for improving services and quality of life for individuals with IDD. In this insightful conversation, Johnathon shares how person-centered thinking, proactive healthcare approaches, and celebrating small wins can transform support systems. He also dives into the critical work IntellectAbility is doing to provide tools, training, and resources that enhance care for people with IDD. Tune in to learn how balancing health, safety, and personal choice leads to a more fulfilling life for individuals with disabilities. For more information on IntellectAbility's resources, visit ReplacingRisk.com.

In this heartfelt episode of the Friends for Life Podcast, we take a journey through cherished memories, laughter, and the deep bonds of family as we remember Uncle Larry. His story is one of resilience, joy, and the unwavering love of his siblings, nieces, and nephews. Through candid storytelling, we hear about Larry's mischievous moments, his love for music and dancing, and the impact he had on those around him. His family recalls the joy of growing up together, treating him no differently than any other sibling, and the challenges they faced navigating the world of developmental disabilities. From hilarious childhood antics to the emotional weight of advocacy and protection, this episode highlights the importance of family support, inclusion, and ensuring dignity for individuals with disabilities. We also explore deeper topics, including the hidden struggles within the disability community—such as vulnerability to abuse—and the importance of speaking out for those who cannot always advocate for themselves. The conversation shifts between joy, nostalgia, and reflection, ultimately emphasizing the lasting impact of love, legacy, and the power of community. Join us for this moving tribute to Uncle Larry, a man whose happiness came from the little things in life and whose presence will never be forgotten.

In this episode of IDD Health Matters, Dr. Craig Escudé welcomes Sharon Parker Love, a nurse with 56 years of experience, to discuss her journey in the field of intellectual and developmental disabilities (IDD) nursing. Recorded at the Illinois Developmental Disabilities Nurses Association Conference, Sharon shares her remarkable career—from starting with a state grant program to dedicating over three decades to Trinity Services, where she has helped individuals with dual diagnoses and complex medical needs. Sharon dives into her work in crisis prevention, recounting heartbreaking and inspiring stories of individuals in need, including an individual who spent eight months in an emergency room before receiving proper care. She emphasizes the importance of observation skills, direct care staff training, and a detective-like approach to uncovering hidden medical conditions that often manifest as behavioral challenges. Tune in for invaluable insights into the evolving role of nurses in IDD care and the crucial need for more professionals in this field.

Join Tony Stuart on this heartfelt episode of Friends for Life as he reflects on the profound impact of his Uncle Larry—a man whose spirit, love, and joy continue to inspire. In honor of the values and memories that shaped his journey, Tony is joined by three of the most influential people in his life: his beloved partner Sher, Uncle Wayne, and Uncle David. Together, they take us on an intimate trip down memory lane, sharing candid stories about growing up in a family bound by unconditional love and resilience. In this deeply personal conversation, the group recalls the playful yet poignant moments of caring for Uncle Larry—from the early days of childhood mischief and backyard cookouts to the challenges and rewards of being his caregiver. Listeners will be treated to vivid anecdotes of dancing contests, humorous family rivalries, and the unique ways in which Larry's free-spirited nature brought everyone together. Amid laughter and tender reminiscences, the episode also explores the importance of family support, the strength found in overcoming adversity, and the life lessons learned from embracing each other's differences. Whether you're looking for inspiration, a reminder of the power of family bonds, or simply a story told with warmth and humor, this episode is a celebration of life, love, and the enduring legacy of those who shape us. Tune in for a conversation that's as entertaining as it is moving—an episode that truly embodies what it means to live a life of friendship and care.

In this episode of the Friends for Life Podcast, we dive into the remarkable life of Helen Keller, a woman who defied all odds to become one of the most influential advocates for people with disabilities. Born in 1880, Keller lost her sight and hearing as a toddler, but with the guidance of her teacher, Anne Sullivan, she broke through the barriers of communication and became the first deaf-blind person to earn a college degree. Her journey didn't stop there—Keller dedicated her life to fighting for disability rights, women's rights, and social justice on a global scale. Join us as we explore her incredible story of perseverance, advocacy, and the lasting impact she left on the world.

Welcome to another insightful episode of IDD Health Matters, hosted by Craig Escudé, MD, FAAFP, FAADM, president of IntellectAbility. In this episode, we explore pioneering approaches to healthcare for individuals with intellectual and developmental disabilities. Join us as Dr. Escude welcomes two distinguished guests from the international arena: Professor Angela Hassiotis from University College London and Dr. Rory Sheehan from King's College London. Professor Hassiotis, a seasoned consultant psychiatrist in the NHS, delves into her groundbreaking research and clinical work aimed at personalizing interventions for aggressive challenging behaviors in adults with IDD. She shares the promising beginnings of the PETAL study in the UK, designed to offer multimodal interventions to those in need. Dr. Sheehan discusses his role as a senior clinical lecturer and psychiatrist, focusing on patients with learning disabilities who encounter legal issues. He highlights the significance of utilizing large data sets to improve care delivery and touches upon the disparities in psychotropic medication use among the IDD population. Together, they discuss the intricacies of the UK's National Health Service and the critical need for specialized training and capacity building in the field of intellectual disability psychiatry. This episode not only sheds light on innovative research and clinical practices but also emphasizes the importance of incorporating lived experiences to enhance intervention strategies. For more insights and detailed discussions on improving healthcare outcomes for the IDD community, tune into this episode of IDD Health Matters. Don't forget to check the show notes for more information and links to further resources.

In this episode of the Friends for Life Podcast, Tony Stuart tackles one of the most challenging aspects of being a supervisor—deciding when to terminate an employee. Tony dives into the complexities of balancing staff shortages, maintaining work ethics, and ensuring that decisions align with both company policies and personal values. He discusses key factors that supervisors must consider, such as health and safety risks, adherence to company policies, timeliness, and overall attitude. Tony emphasizes the importance of clear documentation and how it plays a crucial role in state compliance and reimbursement. He also sheds light on the need for self-reflection, urging supervisors to assess their own management style and communication methods to create a more positive and productive workplace. Whether you're a seasoned leader or new to a supervisory role, this episode offers valuable insights and practical strategies to navigate the difficult but necessary process of employee termination. Tune in and join the conversation with Tony Stuart as he shares his experiences and tips for making informed, fair, and compassionate decisions in the workplace.

In this insightful episode of IDD Health Matters, hosted by Craig Escudé, MD, FAAFP, FAADM, president of IntellectAbility, welcomes Dr. Brandi Kelly, the Clinical Director for Louisiana's Developmental Disability Office. Dr. Kelly discusses her pivotal role in overseeing the state's virtual Resource Center, focusing on enhancing community and provider skills to better serve individuals with co-occurring intellectual, developmental, behavioral, and complex medical needs. Highlighting the unique challenges and innovative solutions in Louisiana, Dr. Kelly shares her personal connection to the field through her sister's experiences and emphasizes the importance of wellness, relationships, and clear communication in healthcare. Join us as we explore how simple adaptations in treatment and care can significantly impact health equity for those with intellectual and developmental disabilities.

In this empowering episode, Tony Stuart dives into practical tips for Direct Support Professionals (DSPs) looking to advance their careers and make a bigger impact in the IDD field. From obtaining certifications like med pass and 60-hour training to the importance of being presentable and professional, Tony shares actionable advice for growing your value, earning potential, and opportunities in the workplace. Learn how small changes—like maintaining a driver's license, building strong teamwork, and understanding supervisory roles—can lead to big transformations in your career. Whether you're aiming for leadership or just want to excel in your role, this episode is packed with insights to help you succeed.

In this episode of the Friends for Life Podcast, we dive into the transformative Think Differently Database Act, a groundbreaking new law signed by President Joe Biden. Tony Stuart joins us to discuss how this legislation will create a first-of-its-kind national clearinghouse for disability resources, empowering individuals with disabilities, their families, and caregivers. We explore what this means for access to essential services like Medicaid, mental health care, and community support, all searchable by zip code. We also highlight the bipartisan effort behind this initiative, championed by leaders like former Rep. Marc Molinaro and Senators Eric Schmitt and Jon Ossoff, and what it signals for the future of disability advocacy. Tony shares insights into how this law, along with other recent measures to improve disaster relief and accessibility at federal buildings and Amtrak stations, represents a step toward fulfilling the promise of inclusion and equity for all. At Friends for Life Residential Care, we are proud to be a provider of essential services for individuals with disabilities in Northwest Ohio. We are dedicated to supporting people in achieving their goals and living fulfilling lives. Learn more about our work and services at friendsforliferc.com. Tune in for an enlightening conversation about the path to a more accessible and supportive future for people with disabilities!

Welcome to another enlightening episode of IDD Health Matters, hosted by Craig Escudé, MD, FAAFP, FAADM, president of IntellectAbility, where we delve into health, wellness, and equity for individuals with intellectual and developmental disabilities. In this episode, we are joined by the talented Cody Clark, a magician and autistic self-advocate from Louisville, Kentucky. From a magical beginning in Gulf Shores, Alabama, Cody shares how a family vacation and an inspiring stage moment sparked his journey into the world of magic at the age of eleven. This episode isn't just about tricks; it's about transformation and advocacy. Cody discusses how embracing his autism publicly became a crucial part of his performances, allowing him to connect deeply with audiences and foster understanding about autism through his art. Cody also sheds light on how healthcare providers can better support individuals with autism, stressing the importance of clear communication and sensory-friendly environments. From the quietness of a dentist's office to the challenges at the pediatrician, Cody's insights offer invaluable advice for medical professionals. Tune in as Cody performs a couple of his thoughtful magic tricks live, demonstrating how magic can not only entertain but also educate and advocate for the autism community. Don't miss this magical blend of art and advocacy that Cody brings to our show. For more about Cody's work or to book him for an event, visit CodyClarkMagic.com. Dive deeper into this episode's content by watching the video version on our YouTube channel at IDD Health Matters Podcast.

In this episode of the Friends for Life Podcast, Tony Stuart dives deep into the power of social intelligence and how mastering this skill can transform both personal and professional relationships. Tony shares valuable tips on approaching problems with empathy, fostering better communication, and building stronger teams. From being “soft on the person and hard on the problem” to the importance of remembering names, Tony highlights practical strategies that anyone can use to make meaningful connections. He also emphasizes the significance of praising publicly and criticizing privately, avoiding gossip, and taking action when faced with challenges instead of dwelling on complaints. Whether you're a direct support professional, a leader in the field, or simply someone looking to enhance your interpersonal skills, Tony's insights will inspire you to lead with compassion and positivity. Tune in for this impactful conversation and take away actionable tips to improve your social interactions and foster a more supportive community!

Join Dr. Craig Escude in this enlightening episode of IDD Health Matters as he sits down with Robert Scholz from the University of New Hampshire's Institute on Disability. Robert shares in-depth insights into the National Center for START Services, a pioneering program designed to provide mental health support and crisis prevention for individuals with intellectual and developmental disabilities (IDD). Starting in the late 1980s in Massachusetts, START has expanded nationwide, aiming to address healthcare disparities and improve access to mental health services for the IDD community. Listen as Robert discusses the program's origins, its evolution, and the real-world impact it has on families and individuals across the country. This episode is a must-hear for anyone interested in mental health advocacy and the innovative approaches to supporting those with IDD. For more details on START and how it could benefit your community, visit the link in our show notes.

In this episode of the Friends for Life Podcast, we take a deep dive into the essential field of care for individuals with developmental disabilities. This vital work goes far beyond basic services—it's about fostering independence, promoting inclusion, and ensuring that individuals with unique needs can lead fulfilling lives within their communities. We explore how specialized care, including speech therapy, occupational therapy, and job coaching, empowers individuals with developmental disabilities to build essential life skills, access employment, and participate meaningfully in society. This care not only benefits individuals but also provides much-needed support for families navigating the complex challenges of caregiving. Historically, people with developmental disabilities faced marginalization and exclusion. Today, caregivers and advocates play a critical role in ensuring that these individuals are treated with dignity and respect. By promoting policies and programs that protect their rights, developmental disability services strengthen the social fabric of our communities and create a culture of acceptance and understanding. This episode is a powerful reminder that investing in the field of developmental disability care isn't just about meeting physical and emotional needs—it's a moral imperative that reflects our collective values of compassion, dignity, and equality. Tune in to learn more about how caregivers, advocates, and service providers are creating a brighter, more inclusive future for everyone.