Podcasts about developmental medicine

In this episode of The Pulling Curls Podcast, hosts Hilary Erickson and Dr. Janene Fuerch, a neonatologist at Stanford, dive into what every pregnant family should know about the NICU (Neonatal Intensive Care Unit). They discuss why it's important to understand NICU basics—even if you're planning a smooth delivery—and share practical tips on how to cope if your baby needs extra care, including ways to stay connected, manage stress, and support bonding. The episode also highlights exciting innovations aimed at making NICU stays safer and more comfortable for babies and families, plus insights on hospital levels and advocacy for neonatal advancements.   Big thanks to our sponsor Laborie -- LifeBubble® Umbilical Catheter Securement System LifeBubble is made of a Soft Medical Grade Silicone to minimize skin irritation, Reduces the Risk of Catheter Migration and Early Discontinuation, and Protects the Insertion Site of our most vulnerable patients. Find them on Instagram @laborie_ob Today's guest is Janene Fuerch, MD. She is a Clinical Associate Professor of Pediatrics, Division of Neonatal and Developmental Medicine, Associate Director of the Biodesign Innovation Fellowship Program at Stanford University, and Co-Director of Impact1 where she mentors and advises entrepreneurs in the pediatric and maternal space through all aspects of medical device development, from identifying clinical needs to commercialization. Her specific areas of investigational interest include the development and commercialization process of neonatal, pediatric and maternal health medical devices. She is a national leader in neonatal resuscitation, ECMO, device development and has been an AHRQ, FDA and NSF funded investigator. But her work extends outside of the academic realm to industry having co-founded EMME (acquired by Simple Health 2022) an award-winning reproductive health company, medical director for Novonate (acquired by Laborie 2023) a neonatal umbilical catheter securement company and notable consultant for Vitara (EXTEND - artificial environment to decrease complications of prematurity), Laborie, Ceribell, Novocuff and Avanos™. Janene is passionate about improving the health of children and newborns through medical device innovation and research. Links for you: Previous Laborie Episode on Forceps (260) Timestamps: 00:00 NICU Challenges: Bonding & Separation 06:55 Choosing the Right Hospital Level 09:47 Bonding with Baby After Separation 14:06 NICU Innovation: Challenges and Opportunities 15:14 Umbilical Catheter Infection Solution 18:17 NICU Bonding and Communication Tips 21:59 Premature Baby Care Innovations 25:04 Prioritizing Investment in Children's Future Keypoints: Many families are surprised when their baby needs to go to the NICU, so it's important for all pregnant families to know some basics about what to expect. The NICU can range from having just a couple of extra staff in the delivery room to having 15 people if a baby needs help, making the birth experience much more intense and involved. Planning ahead with your partner about who will go with the baby in case of separation can help make a stressful situation a little easier. About 10% of babies need some help breathing at birth, but most recover quickly; only a small percentage require NICU care beyond the basic interventions. NICUs are graded by levels (I-IV), and knowing what level your hospital offers can help families prepare—higher-level NICUs can treat more complex issues but aren't always necessary for uncomplicated births. If your hospital isn't a level III or IV, babies needing higher-level care may need to be transferred, which could mean temporary separation from parents; hospitals always work to reunite families as quickly as possible. NICU nurses are passionate, skilled, and deeply care about the babies and their families, creating a loving and safe environment even during stressful times. Parents can support their recovery and milk production by getting rest and using NICU technologies (like webcams) to stay connected—it's okay to take breaks and trust the NICU staff. Emerging technologies like Labry's Life Bubble are making NICU stays safer and more comfortable, allowing parents to hold their babies even when special catheters are in place. Skin-to-skin contact in the NICU is highly beneficial for both babies and parents, helping with bonding, milk production, and even neurodevelopment; parents are encouraged to ask staff about timing and any concerns about wires or tubes. Producer: Drew Erickson Keywords: NICU, neonatal intensive care unit, premature babies, neonatologist, types of NICU levels, level 1 NICU, level 2 NICU, level 3 NICU, level 4 NICU, hospital delivery, separation from baby, bonding with baby, skin-to-skin contact, umbilical catheters, infection prevention, NICU innovations, Labry, Life Bubble, technology in NICU, neonatal health, maternal health, NICU nurses, milk production, pumping breast milk, trauma of NICU stays, baby monitoring, necrotizing enterocolitis, artificial womb therapy, premature birth complications, hospital transfer, parental tips for NICU, emotional impact of NICU  

Dr. Patricia Tan serves as Medical Director for Rusk Pediatrics Rehabilitation. Her Certification is from the American Board of Physical Medicine & Rehabilitation. She has been selected as a Fellow by the following organizations: American Academy of Physical Medicine and Rehabilitation; American Academy of Pediatrics; American Academy of Cerebral Palsy and Developmental Medicine; and the Association of Academic Physiatrists. Her medical degree is from the University of Santo Tomas in Manila, Philippines. Dr. Megan Conklin is Associate Director of Rusk Pediatric Therapy Services at NYU Langone. She works collaboratively with an interdisciplinary team across the spectrum of pediatric diagnoses from birth through the transition into adulthood. She has a Doctor of Physical Therapy degree, 20 years of clinical experience at NYU; and is certified as a clinical specialist in pediatric physical therapy by the American Board of Physical Therapy Specialties of the American Physical Therapy Association. Part 2 The discussion included the following topics: quality measures used to determine if desired outcomes are being achieved; challenges or potential downsides associated with a transition from pediatric to adult care; integration of artificial intelligence into pediatric rehabilitation; and current pediatric research conducted at NYU.

Dr. Alicia Thatcher, a family physician from Saskatchewan, Canada, specializes in primary care for adults with intellectual and developmental disabilities (IDD). Her passion for this field began as a camp counselor and evolved through involvement in organizations like Special Olympics and Best Buddies. Recognizing the gap in adult services compared to pediatric care, she has pioneered curriculum development for medical education, aiming to make care for adults with IDD more sustainable and widespread. She also plays a leadership role in national initiatives, including the Developmental Disabilities Member Interest Group and the American Academy of Developmental Medicine and Dentistry, advocating for integrated care and inclusive education. Her work emphasizes amplifying voices of those with lived experience, using respectful language in healthcare, and creatively embedding IDD topics into medical and dental training.

Dr. Patricia Tan serves as Medical Director for Rusk Pediatrics Rehabilitation. Her Certification is from the American Board of Physical Medicine & Rehabilitation. She has been selected as a Fellow by the following organizations: American Academy of Physical Medicine and Rehabilitation; American Academy of Pediatrics; American Academy of Cerebral Palsy and Developmental Medicine; and the Association of Academic Physiatrists. Her medical degree is from the University of Santo Tomas in Manila, Philippines. Dr. Megan Conklin is Associate Director of Rusk Pediatric Therapy Services at NYU Langone. She works collaboratively with an interdisciplinary team across the spectrum of pediatric diagnoses from birth through the transition into adulthood. She has a Doctor of Physical Therapy degree, 20 years of clinical experience at NYU; and is certified as a clinical specialist in pediatric physical therapy by the American Board of Physical Therapy Specialties of the American Physical Therapy Association. Part 1 The discussion included the following topics: kinds of health problems and conditions treated; age range of patients; clinical guidelines and evidence-based treatment protocols used; holistic approaches to treatment; collaboration with families of patients; and composition of the health care team

This IDD Perspectives webinar episode features Dr. M. Dian Chin Kit-Wells, a board-certified pediatric dentist and president of the American Academy of Developmental Medicine and Dentistry. The discussion centers on the most common dental health concerns affecting individuals with intellectual and developmental disabilities (IDD). Topics include the systemic importance of oral health, gum disease, halitosis, tongue abnormalities, enamel erosion, and bruxism. The conversation emphasizes the connection between oral and overall health, the impact of medications, and the role of caregivers in maintaining dental hygiene. Practical advice is offered on prevention strategies, including brushing, flossing, dietary choices, and the use of baking soda. This episode also highlights resources and organizations that support dental care for people with IDD, advocating for interdisciplinary collaboration and education. You can find the free handout mentioned during the webinar at https://replacingrisk.com/webinars/. All webinar handouts are located at the bottom of the page.

We are re-airing this episode from 2023. Is our healthcare systemaccessible for people with disabilities or just compliant? This week we talkwith Dr. Priya Chandan, MD, MPH, who is Vice President of Healthcare Qualityand Analytics at Kramer Davis and Clinical Associate Professor in the Divisionof Physical Medicine & Rehabilitation at the University of LouisvilleSchool of Medicine; and Dr. Emily Noonan, PhD, MA, who is Assistant Professorin Undergraduate Medical Education at the University of Louisville School ofMedicine. We discuss disability and medicine, which touches all cliniciansregardless of specialty. Priya and Emily describe how ableism and the lack ofaccessibility create barriers to care for people with disabilities, and theydiscuss their curriculum initiatives that engage self-advocates to teach studentsabout disability and health care. Learn more about their work to improve healthcare for people with intellectual/developmental disabilities here. Do you have comments or questionsabout Faculty Feed? Contact us at FacFeed@louisville.edu. We look forward to hearing fromyou.

Casar com o primo faz mal? Separe trinta minutinhos do seu dia e descubra, com Mila Massuda, como a endogamia pode afetar a saúde de pessoas, plantas, animais e até de espécies inteiras. Do queixo dos Habsburgos aos filhos de Darwin, passando pelas ervilhas de Mendel, esse episódio mostra por que cruzar com quem é aparentado pode não ser uma boa ideia e o que a genética tem a ver com tudo isso.Apresentação: Mila Massuda (@milamassuda)Roteiro: Mila Massuda (@milamassuda) e Emilio Garcia (@emilioblablalogia)Revisão de Roteiro: Vee Almeida e Caio de Santis (@caiodesantis)Técnica de Gravação: Julianna Harsche (@juvisharsche)Editora: Lilian Correa (@_lilianleme)Mixagem e Masterização: Rafael de Falco (@rafel.falco) Produção: Prof. Vítor Soares (@profvitorsoares), Matheus Herédia (@Matheus_Heredia), BláBláLogia (@blablalogia), Caio de Santis (@caiodesantis) e Biologia em Meia Hora (@biologiaemmeiahora)Gravado e editado nos estúdios TocaCast, do grupo Tocalivros (@tocalivros)REFERÊNCIASBITTLES, A. H. The bases of Western attitudes to consanguineous marriage. Developmental Medicine & Child Neurology, v. 45, p. 135–138, 2003.BITTLES, A. H.; BLACK, M. L. Consanguinity, human evolution, and complex diseases. Proceedings of the National Academy of Sciences, v. 107, supl. 1, p. 1779–1786, 2010. Disponível em: https://doi.org/10.1073/pnas.0906079106. Acesso em: 8 abr. 2025.BOUCHER, A. ‘But You Know There's a Cousin': Endogamous Marriage in Sensation Fiction. In: Science, Medicine, and Aristocratic Lineage in Victorian Popular Fiction. Cham: Palgrave Macmillan, 2023. Disponível em: https://doi.org/10.1007/978-3-031-41141-0_4. Acesso em: 8 abr. 2025.CHARLESWORTH, D.; WILLIS, J. H. The genetics of inbreeding depression. Nature Reviews Genetics, v. 10, n. 11, p. 783–796, 2009. Disponível em: https://doi.org/10.1038/nrg2664. Acesso em: 8 abr. 2025.DARWIN, C. On the Various Contrivances by Which British and Foreign Orchids Are Fertilized by Insects, and on the Good Effects of Intercrossing. London: John Murray, 1862. p. 359–360.DARWIN, C. The Effects of Cross and Self-Fertilization in the Vegetable Kingdom. London: John Murray, 1876. p. 460–461.DARWIN, G. H. Marriages between first cousins in England and Wales and their effects. Journal of the Statistical Society, v. 38, p. 153–184, 1875.KELLER, L. F.; WALLER, D. M. Inbreeding effects in wild populations. Trends in Ecology & Evolution, v. 17, n. 5, p. 230–241, 2002. Disponível em: https://doi.org/10.1016/S0169-5347(02)02489-8. Acesso em: 8 abr. 2025.OTTENHEIMER, M. Forbidden Relatives: The American Myth of Cousin Marriage. Urbana: University of Illinois Press, 1996.

In this episode of the Brain & Life Podcast, co-host Dr. Katy Peters is joined by Shea Hammond, athlete and founder of CP Soccer. Shea shares about his personal experience growing up with Cerebral Palsy (CP) and how staying active and working with a physical therapist has helped him continue to reach his goals. He also discusses CP Soccer's mission, to build a nationwide soccer league for kids who are affected by cerebral palsy, stroke or traumatic brain injury, and what's next for the organization. Dr. Peters is then joined by Dr. Mauricio Delgado, professor of neurology at UT Southwestern Medical Center, former president of the American Academy for Cerebral Palsy and Developmental Medicine and co-founder member of the Mexican Academy for Cerebral Palsy and Neurodevelopmental Disabilities. Dr. Delgado explains how CP is diagnosed and treated, and what the future for those affected and their caregivers looks like.   Additional Resources CP Soccer Biking Gives Freedom to a Teen with Cerebral Palsy How Parents Advocate for Their Children with Rare Diseases   Other Brain & Life Podcast Episodes RJ Mitte on Living Confidently with Cerebral Palsy Gavin McHugh is Building an Acting Career and a Community with Cerebral Palsy Josh Blue Uses Humor to Ease the Stigma Around Cerebral Palsy We want to hear from you! Have a question or want to hear a topic featured on the Brain & Life Podcast? ·       Record a voicemail at 612-928-6206 ·       Email us at BLpodcast@brainandlife.org   Social Media: Shea Hammond @shea_hammond; Dr. Mauricio Delgado @utswmedcenter Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD

In this episode of the IDD Health Matters Podcast, host Dr. Craig Escudé sits down with Dr. David Fray, a trailblazer in dentistry and healthcare for individuals with intellectual and developmental disabilities (IDD). Dr. Fray shares his inspiring journey, from growing up in a disability-friendly household to a career that has spanned private practice, teaching, global health initiatives, and leadership roles in state and international healthcare systems. Together, they discuss the importance of collaborative care, the need for person-centered and lifespan-focused health planning, and the transformative power of cultural empathy in supporting individuals with IDD. Dr. Fray also highlights his work with the American Academy of Developmental Medicine and Dentistry (AADMD) and the impact of global initiatives in advancing healthcare equity. Don't miss this enlightening conversation filled with practical insights, personal stories, and a call to action for a more inclusive healthcare system.

In this episode of the IDD Health Matters Podcast, host Dr. Craig Escudé sits down with Dr. David Fray, a trailblazer in dentistry and healthcare for individuals with intellectual and developmental disabilities (IDD). Dr. Fray shares his inspiring journey, from growing up in a disability-friendly household to a career that has spanned private practice, teaching, global health initiatives, and leadership roles in state and international healthcare systems. Together, they discuss the importance of collaborative care, the need for person-centered and lifespan-focused health planning, and the transformative power of cultural empathy in supporting individuals with IDD. Dr. Fray also highlights his work with the American Academy of Developmental Medicine and Dentistry (AADMD) and the impact of global initiatives in advancing healthcare equity. Don't miss this enlightening conversation filled with practical insights, personal stories, and a call to action for a more inclusive healthcare system.

In this special Complex Care Journal Club podcast episode, co-hosts Drs. Kilby Mann and Kristie Malik interview presenters of posters and oral abstracts relevant to the care of children with medical complexity at the American Academy for Cerebral Palsy and Developmental Medicine (AACPDM) 78th Annual Meeting in Quebec City, Canada that took place October 23rd-26th 2024. Speakers describe the implications of their study findings, messages for patients and families, and priority areas for research that they hope can be investigated further by the complex care community in the coming years. SPEAKERS Tori Bahr, MD MedPeds Complex Care Physician Section Chief of Pediatrics Gillette Children's, St. Paul, Minnesota Laura Brunton, PT, PhD Associate Professor School of Physical Therapy Western University, London, Ontario Caitlin Cassidy, MD Associate Professor Departments of Physical Medicine & Rehabilitation and Pediatrics Western University, London, Ontario Adam Rosenbloom, MD, MPH Complex Care Pediatrician Dell Children's Medical Center University of Texas at Austin, Dell Medical School Cristina Sarmiento, MD Assistant Professor Department of Physical Medicine and Rehabilitation University of Colorado Anschutz Medical Campus, Aurora, Colorado Julie Stutzbach, PT, DPT, PhD Assistant Professor School of Rehabilitative and Health Sciences Regis University, Denver, Colorado HOSTS Kristina Malik, MD Assistant Professor of Pediatrics, University of Colorado School of Medicine Medical Director, KidStreet Pediatrician, Special Care Clinic, Children's Hospital Colorado Kilby Mann, MD Assistant Professor Pediatric Rehabilitation Medicine Children's Hospital Colorado DATE Initial publication date: November 11, 2024. ARTICLES AND ADDITIONAL REFERENCES • American Academy for Cerebral Palsy and Developmental Medicine (AACPDM), https://www.aacpdm.org/ • AACPDM Complex Care Committee (https://www.aacpdm.org/about-us/committees/complex-care) • Houtrow AJ, Hurwitz MB. A dearth of disability-related competencies in Accreditation Council for Graduate Medical Education's Milestones 2.0. PM R. 2024 Aug 23. doi: 10.1002/pmrj.13257. Epub ahead of print. PMID: 39177053. • Fehlings D, Agnew B, Gimeno H, Harvey A, Himmelmann K, Lin JP, Mink JW, Monbaliu E, Rice J, Bohn E, Falck-Ytter Y. Pharmacological and neurosurgical management of cerebral palsy and dystonia: Clinical practice guideline update. Dev Med Child Neurol. 2024 Sep;66(9):1133-1147. doi: 10.1111/dmcn.15921. Epub 2024 Apr 19. PMID: 38640091. • AACPDM Care Pathway Dystonia in Cerebral Palsy, https://www.aacpdm.org/publications/care-pathways/dystonia-in-cerebral-palsy TRANSCRIPT https://cdn.bfldr.com/D6LGWP8S/as/p9pj6g7sxn5kjmmgps5wnk4/111124_-_Complex_Care_at_the_American_Academy_for_Cerebral_Palsy_and_Developmental_Medicine_Annual_Meeting Please visit: http://www.openpediatrics.org OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children's Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open access-and thus at no expense to the user.For further information on how to enroll, please email: openpediatrics@childrens.harvard.edu CITATION Malik K, Bahr T, Brunton L, Cassidy C, Rosenbloom A, Sarmiento C, Stuzbach J, Mann K. Complex Care at the American Academy for Cerebral Palsy and Developmental Medicine Annual Meeting. 11/2024. OPENPediatrics. Online Podcast.. https://soundcloud.com/openpediatrics/complex-care-at-the-aacpdm-2024.

incredible!The team at the ResearchWorks Podcast are celebrating 200 episodes! With over 4 seasons, invited collaborators with the EACD - European Academy of Childhood-onset Disabilities Conference and the AusACPDM - the Australasian Academy of Cerebral Palsy and Developmental Medicine and Transformative Practice Award Winners for 2024, it has been a stellar journey.

Dr. Carl Tyler is a leading figure in the field of healthcare for individuals with intellectual and developmental disabilities (IDD). He is the current president of the American Academy of Developmental Medicine and Dentistry (AADMD), an organization dedicated to improving healthcare for people with IDD through education, advocacy, and policy efforts. Dr. Tyler is also a professor of family medicine at the Cleveland Clinic, where he plays a key role in training healthcare providers, including residents, on how to care for individuals with IDD. His career began during the deinstitutionalization movement in Ohio, and over time, he became a strong advocate for improving healthcare systems and training physicians to meet the specific needs of this population. Dr. Tyler's work includes research, scholarship, and contributions to medical literature, and he has helped integrate specialized care for individuals with IDD into mainstream medical training programs. In addition to his clinical and educational work, Dr. Tyler has authored several key resources, including the book Intellectual Disability at Your Fingertips, which provides practical guidance for healthcare providers working with this population.

Dr. Carl Tyler is a leading figure in the field of healthcare for individuals with intellectual and developmental disabilities (IDD). He is the current president of the American Academy of Developmental Medicine and Dentistry (AADMD), an organization dedicated to improving healthcare for people with IDD through education, advocacy, and policy efforts. Dr. Tyler is also a professor of family medicine at the Cleveland Clinic, where he plays a key role in training healthcare providers, including residents, on how to care for individuals with IDD. His career began during the deinstitutionalization movement in Ohio, and over time, he became a strong advocate for improving healthcare systems and training physicians to meet the specific needs of this population. Dr. Tyler's work includes research, scholarship, and contributions to medical literature, and he has helped integrate specialized care for individuals with IDD into mainstream medical training programs. In addition to his clinical and educational work, Dr. Tyler has authored several key resources, including the book Intellectual Disability at Your Fingertips, which provides practical guidance for healthcare providers working with this population.

Interviewees: Raffi Najarian and Justin Ramsey Interviewer: Lisa Meeks Description: In this conversation, Lisa Meeks interviews Raffi Najarian and Justin Ramsey, both pediatric rehabilitation physicians with cerebral palsy. They discuss their journey to medical school and the challenges they faced along the way. Raffi shares his experience of applying to medical school and the support he received from his family. Justin talks about the internal barriers he faced and the importance of finding the right mentor. They also discuss the challenges they encountered during medical school, including access barriers. In this conversation, Raffi Najarian and Justin Ramsey discuss their experiences as medical students with disabilities. They share the challenges they faced in anatomy lab and how they overcame them. They also talk about dealing with difficult faculty members and the importance of kindness and feedback in medical training. Raffi and Justin explain why they chose physiatry as their specialty and the impact they have on their patients. They emphasize the importance of visibility and representation for individuals with disabilities in the medical field. Finally, they offer advice for students with disabilities who are considering a career in medicine. Keywords: physiatry, medical education, doctors with disabilities, cerebral palsy, pediatric rehabilitation, med school applications, accessibility, accommodations, disability representation Transcript: https://bit.ly/3yuxJf8 Bios: Justin Ramsey, M.D. is board certified in Physical Medicine and Rehabilitation and is sub-specialty boarded in Pediatric Rehabilitation Medicine. He graduated from the Kansas University School of Medicine. He then completed his Physical Medicine and Rehabilitation training at the Kansas University Medical Center and a fellowship program in Pediatric Rehabilitation Medicine at Children's Mercy Hospital (Kansas City, MO). Dr. Ramsey spent several years as faculty with the Pediatric Rehabilitation Medicine fellowship program at Children's Mercy Hospital and the Kansas University Medical Center's Physical Medicine and Rehabilitation Department. He has served as chair of the Advocacy Committee for the American Academy for Cerebral Palsy and Developmental Medicine and has served on its Communications Committee. Currently, he works at a private pediatric rehabilitation hospital (Bethany Children's Health Center) near Oklahoma City, which specializes in the care of children with disabilities. In collaboration with neurology and OU Health Science Center's neurosurgery department, he has created Oklahoma's joint pediatric movement clinic. He currently serves as the Associate Medical Director for the Movement clinic and Cerebral Palsy. He volunteers as a Clinical Associate Professor of Neurology at The University of Oklahoma Health Sciences Center. Justin has hemiparetic cerebral palsy and is active in local advocacy. He is married to his wife (Kendra) and has 2 beautiful young children (Ryan and Reese), who keep his family busy. Medical and disability education are some of his major subjects of interest. He is grateful for early college experiences in working with individuals with disabilities while volunteering at Hetlinger Developmental Services, Inc in his hometown of Emporia, KS. Dr. Raffi Najarian has been in practice since 2013. He is a pediatric physiatrist and director of the Spasticity Clinic at Akron Children's Hospital. A graduate of the University of Michigan and Wayne State University School of Medicine in Detroit, MI, he completed his residency in physical medicine and rehabilitation at MetroHealth Rehabilitation Institute of Ohio in Cleveland. He then completed a fellowship in Pediatric Rehabilitation Medicine at Gillette Children's Specialty Healthcare in Saint Paul, MN. Dr. Najarian has a special interest in cerebral palsy, spasticity management, brain injury, stroke, spinal cord injury, spina bifida, acute inpatient and outpatient rehabilitation and concussion management. He is certified by the American Board of Physical Medicine and Rehabilitation and subspecialty certified in Pediatric Rehabilitation Medicine. He is a member of the American Academy of Physical Medicine and Rehabilitation and the American Academy for Cerebral Palsy and Developmental Medicine, and served on the latter's Lifespan Committee.  He is an Associate Professor of Pediatrics at Northeast Ohio Medical University (NEOMED).  Raffi has diplegic cerebral palsy and is an advocate for children and adults with disabilities.  He serves as a member of the United Cerebral Palsy Research Committee and on the board of directors for Adaptive Sports Ohio, while participating  as an active member of the Akron Rhinos wheelchair rugby team.   Produced by: Gabe Abrams and Dr. Lisa Meeks.  Audio editor: Jacob Feeman Digital Media: Katie Sullivan Resources: Professional Learning Series - United Cerebral Palsy, UCP Research Initiative & Committee - United Cerebral Palsy, Physicians' Perceptions Of People With Disability And Their Health Care   https://www.yourcpf.org https://cprn.org  

Dr. Craig Escudé discusses the importance of training doctors to care for the IDD and neurodivergent communities. Dr. Craig Escudé is a board-certified Fellow of the American Academy of Family Physicians and the American Academy of Developmental Medicine with over 20 years of clinical experience providing medical care for people with intellectual and developmental disabilities and complex medical conditions. He is the president of IntellectAbility, the mission of which is to “…provide tools and training to those who support people with vulnerabilities, helping them replace risk with health and wellness.” Dr. Escudé's pursuit of educating clinicians led him to create the Curriculum in IDD Healthcare, the first-of-its-kind eLearn course that teaches the fundamentals of IDD healthcare to physicians, nurses, medical students, and other clinicians. Through this course, his lectures, and his writings, he has taught thousands of clinicians and supporters throughout the United States and beyond. In addition to being regularly published in Exceptional Parent Magazine, he also co-authors “Unlocking Behaviors” article series in Helen: The Journal of Human Exceptionality which sheds light on how many so-called “adverse behaviors” in people with IDD are actually due to treatable medical, environmental or social causes. He also hosts the podcast “IDD Health Matters with Craig Escudé, MD,” where he speaks with a wide range of leaders, self-advocates, agency directors, clinicians, administrators, and others from across the globe involved in designing and facilitating service delivery to people with IDD. For more about Dr. Escudé's work: https://www.replacingrisk.com/ And look for IDD Health Matters Podcast, including on YouTube: https://www.youtube.com/@IDDHealthMatters/featured Follow Different Brains on social media: https://twitter.com/diffbrains https://www.facebook.com/different.brains/ https://www.instagram.com/diffbrains/ Check out more episodes of Exploring Different Brains! http://differentbrains.org/category/edb/

In this engaging episode of "IDD Health Matters," Dr. Craig Escude, broadcasting from the American Academy of Developmental Medicine and Dentistry conference in Denver, Colorado, delves into the innovative integration of dental and occupational therapy for patients with intellectual and developmental disabilities. His guests, Dr. Meelin D. Chin Kit-Wells DDS, M.Ed., a pediatric dentist, and Elizabeth Thompson, an occupational therapist, share their pioneering approach to specialized dental care. Dr. Wells highlights the unique setup of their practice, which incorporates a full-time occupational therapist to enhance patient care. This collaboration has proven essential in understanding and meeting the unique needs of their patients through pre-visit interviews, optimized communication strategies, and tailored patient support during dental procedures. Elizabeth Thompson discusses her role in preparing patients for visits, which includes gathering detailed personal and medical histories and designing bespoke interventions to improve patient comfort and cooperation during dental treatments. These strategies include desensitization techniques to familiarize patients with dental procedures and environments gradually, aiming to reduce anxiety and improve overall care outcomes. The episode also covers the importance of education for healthcare providers, emphasizing compassion and understanding in treating patients with disabilities. Dr. Wells and Ms. Thompson share valuable insights into creating more inclusive and effective healthcare environments, reflecting on the broader implications of their work in fostering health equity. Dr. Escude's podcast offers a profound look into the advancements in healthcare for individuals with developmental challenges, spotlighting the dedication and innovation driving change within the field. 

In this engaging episode of "IDD Health Matters," Dr. Craig Escude, broadcasting from the American Academy of Developmental Medicine and Dentistry conference in Denver, Colorado, delves into the innovative integration of dental and occupational therapy for patients with intellectual and developmental disabilities. His guests, Dr. Meelin D. Chin Kit-Wells DDS, M.Ed., a pediatric dentist, and Elizabeth Thompson, an occupational therapist, share their pioneering approach to specialized dental care. Dr. Wells highlights the unique setup of their practice, which incorporates a full-time occupational therapist to enhance patient care. This collaboration has proven essential in understanding and meeting the unique needs of their patients through pre-visit interviews, optimized communication strategies, and tailored patient support during dental procedures. Elizabeth Thompson discusses her role in preparing patients for visits, which includes gathering detailed personal and medical histories and designing bespoke interventions to improve patient comfort and cooperation during dental treatments. These strategies include desensitization techniques to familiarize patients with dental procedures and environments gradually, aiming to reduce anxiety and improve overall care outcomes. The episode also covers the importance of education for healthcare providers, emphasizing compassion and understanding in treating patients with disabilities. Dr. Wells and Ms. Thompson share valuable insights into creating more inclusive and effective healthcare environments, reflecting on the broader implications of their work in fostering health equity. Dr. Escude's podcast offers a profound look into the advancements in healthcare for individuals with developmental challenges, spotlighting the dedication and innovation driving change within the field. 

Labels op mensen plakken is tegenwoordig vrij normaal. Sommige mensen vinden dat erg fijn. Anderen niet. We vinden er eigenlijk allemaal wel wat van. In deze aflevering onderzoeken Thijs en Lennard of labels nuttig zijn en waar ze juist problematisch voor zijn. Je leert hoe psychologische labels worden verzonnen, hoe je ze dan uiteindelijk opgespeld krijgt en wat daar behulpzaam en minder behulpzaam aan is. Daarnaast staan ze kort stil bij het overlijden van grote held in de psychologie: Daniel Kahneman. Adverteren in deze podcast? Mail naar podcasts@astrolads.com Bronnen en ander lees- en luister- en kijkvoer: - Info over de DMS-5: https://www.nvvp.net/website/onderwerpen/detail/dsm-5 die je trouwens ook hier kunt vinden, mocht je geïnteresseerd zijn: https://dsm-5.nl/ - Een interessant interview van Rijksuniversiteit Groningen over labels: https://www.rug.nl/gmw/research/verslag-publieksacademie/zin-en-onzin-psychische-labels/?lang=en - Of in Psychology Today: https://www.psychologytoday.com/intl/blog/escaping-our-mental-traps/202307/rethinking-mental-health-challenging-the-dangers-of-labels - Een interessante TED-x talk van Rwenshaun Miller die het label bipolaire stoornis heeft. Hij vertelt hoe hij positief omgaat met dit label en andere labels die hij heeft. https://www.youtube.com/watch?v=KjQ7bYHizSU - Filmpje van een therapeute die vertelt wat het gevaar is van labels voor de therapeuten zelf (en daarmee voor de cliënt). Denkfouten sluipen er alsnog in bij therapeuten als ze uitgaan bij een cliënt van een label: https://www.youtube.com/watch?v=BjiXQNcqZhE Nerd-literatuur: - Werkhoven, S., Anderson, J. H., & Robeyns, I. A. (2022). Who benefits from diagnostic labels for developmental disorders?. Developmental Medicine & Child Neurology, 64(8), 944-949. - Sweet, P. L., & Decoteau, C. L. (2018). Contesting normal: The DSM-5 and psychiatric subjectivation. BioSocieties, 13, 103-122. - Thyer, B. A. (2015). The DSM-5 definition of mental disorder: Critique and alternatives. Critical thinking in clinical assessment and diagnosis, 45-68. - Farrington, D. P., Osborn, S. G., & West, D. J. (1978). The persistence of labelling effects. Brit. J. Criminology, 18, 277. - Pohl, R. F. (2012). Effects of labelling. In Cognitive illusions (pp. 339-356). Psychology Press.

In this enlightening episode of IDD Health Matters, Dr. Craig Escude welcomes Dr. Seth Keller, a neurologist specializing in the care of adults with neurological complications, including those with intellectual and developmental disabilities (IDD). The episode, recorded at the American Academy of Developmental Medicine and Dentistry conference in Denver, Colorado, delves into Dr. Keller's journey in the field, his insights on health equity, and his extensive work on dementia, particularly in individuals with Down Syndrome. Key Topics Covered Dr. Keller's Background and Evolution in IDD Care: Dr. Keller shares his transition from a general adult neurologist to an expert in complex epileptic care in developmental disabilities. He reflects on his early years in institutionalized care and his growing awareness of the social and medical needs of individuals with IDD. Healthcare Disparities and Advocacy: The conversation highlights the unfortunate reality of healthcare disparities faced by people with IDD. Dr. Keller discusses the challenges in training healthcare providers to understand and effectively treat individuals with IDD, emphasizing the importance of behavior as a form of communication. Dementia in Down Syndrome: Dr. Keller provides a detailed explanation of the increased risk of early-onset Alzheimer's disease in individuals with Down Syndrome. He discusses the importance of understanding baseline functioning to diagnose dementia and the development of tools to track changes in daily living activities. The National Task Group on Intellectual Disabilities and Dementia Practices (NTG): As co-president of the NTG, Dr. Keller talks about the organization's role in addressing aging-related issues in people with IDD. He explains the use of tools like the Early Detection Screen for Dementia (EDSD) to identify changes in individuals with IDD. Experience in Ukraine: Dr. Keller shares his poignant experiences in Ukraine, where he observed the state of institutionalized care for individuals with IDD. He discusses the cultural and systemic challenges in these settings and the impact of the ongoing conflict on people with disabilities. Future Directions in Neurology and Dementia: The episode concludes with a teaser for a future discussion on the latest developments in neurology and dementia, particularly relating to Down Syndrome.

In this enlightening episode of IDD Health Matters, Dr. Craig Escude welcomes Dr. Seth Keller, a neurologist specializing in the care of adults with neurological complications, including those with intellectual and developmental disabilities (IDD). The episode, recorded at the American Academy of Developmental Medicine and Dentistry conference in Denver, Colorado, delves into Dr. Keller's journey in the field, his insights on health equity, and his extensive work on dementia, particularly in individuals with Down Syndrome. Key Topics Covered Dr. Keller's Background and Evolution in IDD Care: Dr. Keller shares his transition from a general adult neurologist to an expert in complex epileptic care in developmental disabilities. He reflects on his early years in institutionalized care and his growing awareness of the social and medical needs of individuals with IDD. Healthcare Disparities and Advocacy: The conversation highlights the unfortunate reality of healthcare disparities faced by people with IDD. Dr. Keller discusses the challenges in training healthcare providers to understand and effectively treat individuals with IDD, emphasizing the importance of behavior as a form of communication. Dementia in Down Syndrome: Dr. Keller provides a detailed explanation of the increased risk of early-onset Alzheimer's disease in individuals with Down Syndrome. He discusses the importance of understanding baseline functioning to diagnose dementia and the development of tools to track changes in daily living activities. The National Task Group on Intellectual Disabilities and Dementia Practices (NTG): As co-president of the NTG, Dr. Keller talks about the organization's role in addressing aging-related issues in people with IDD. He explains the use of tools like the Early Detection Screen for Dementia (EDSD) to identify changes in individuals with IDD. Experience in Ukraine: Dr. Keller shares his poignant experiences in Ukraine, where he observed the state of institutionalized care for individuals with IDD. He discusses the cultural and systemic challenges in these settings and the impact of the ongoing conflict on people with disabilities. Future Directions in Neurology and Dementia: The episode concludes with a teaser for a future discussion on the latest developments in neurology and dementia, particularly relating to Down Syndrome.

In this insightful episode of IDD Health Matters, host Dr. Craig Escude engages in a deep and meaningful conversation with Dr. Benjamin Margolis, MD, a colleague and expert in neurobehavioral care for individuals with intellectual and developmental disabilities (IDD). Dr. Margolis, who also specializes in psychiatry and neurology, shares his journey into the field of IDD, highlighting the importance of understanding and addressing the unique health needs of this population. Throughout the episode, Dr. Margolis emphasizes the critical role of communication in providing effective care. He discusses the challenges and rewards of working in this specialized area, including the complexities of behavioral health needs in individuals with IDD. Dr. Margolis also touches on his experiences with movement disorders, neurodegenerative disorders, and post-TBI care, underscoring the diverse needs of his patients. The conversation further delves into the systemic issues in healthcare for individuals with IDD, with both Dr. Escude and Dr. Margolis sharing their experiences and insights on improving health equity and respect for this community. They discuss the American Academy of Developmental Medicine and Dentistry (AADMD) and its efforts to enhance clinical competency and provide comprehensive care. Listeners will gain a deeper understanding of the nuances of neurobehavioral care in the IDD community, the importance of multidisciplinary approaches, and the value of organizations like AADMD in fostering collaboration and advocacy in this field. This episode is a must-listen for healthcare professionals, caregivers, and anyone interested in the intersection of neurobehavioral health and intellectual and developmental disabilities. Join Dr. Escude and Dr. Margolis for a thought-provoking discussion that sheds light on the challenges, innovations, and heartfelt dedication in the world of IDD health care.

In this insightful episode of IDD Health Matters, host Dr. Craig Escude engages in a deep and meaningful conversation with Dr. Benjamin Margolis, MD, a colleague and expert in neurobehavioral care for individuals with intellectual and developmental disabilities (IDD). Dr. Margolis, who also specializes in psychiatry and neurology, shares his journey into the field of IDD, highlighting the importance of understanding and addressing the unique health needs of this population. Throughout the episode, Dr. Margolis emphasizes the critical role of communication in providing effective care. He discusses the challenges and rewards of working in this specialized area, including the complexities of behavioral health needs in individuals with IDD. Dr. Margolis also touches on his experiences with movement disorders, neurodegenerative disorders, and post-TBI care, underscoring the diverse needs of his patients. The conversation further delves into the systemic issues in healthcare for individuals with IDD, with both Dr. Escude and Dr. Margolis sharing their experiences and insights on improving health equity and respect for this community. They discuss the American Academy of Developmental Medicine and Dentistry (AADMD) and its efforts to enhance clinical competency and provide comprehensive care. Listeners will gain a deeper understanding of the nuances of neurobehavioral care in the IDD community, the importance of multidisciplinary approaches, and the value of organizations like AADMD in fostering collaboration and advocacy in this field. This episode is a must-listen for healthcare professionals, caregivers, and anyone interested in the intersection of neurobehavioral health and intellectual and developmental disabilities. Join Dr. Escude and Dr. Margolis for a thought-provoking discussion that sheds light on the challenges, innovations, and heartfelt dedication in the world of IDD health care.

In this episode, I interview Carolyn and Phil about their decades of research on couples and the changes they experience after the birth of the first child. They discussed how Carolyn had been an elementary school teacher and was pregnant with their second child when they moved to Berkeley where Phil was starting his new job at the University of California, Berkeley. They discussed how their own life experiences led them to be interested in the effect of having children on the couple's relationship, and created a study where couples joined a group during their third trimester of a first pregnancy, and worked together until their child was four months old. In comparison to the control group, who were not offered the couples group intervention, the couples in the groups maintained their relationship satisfaction, while the couples in the control couples with no intervention experienced a significant decrease in satisfaction, which was also reflected in studies by others that followed. The Cowans then worked with another group of couples from when their first child was making the transition to school, and followed them until the children entered high school at 14-15 years old. They discussed the exercises they used during these inventions, and how it was so significant for these couples to talk with their partners in a safe setting about the key issues in their lives and to hear others' experiences and discover that they were not alone during these difficult times. The first two studies were with nonclinical couples in the community. Later, they received a grant to work with low-income couples who had few resources for support, which was designed to increase fathers' engagement with the mothers and their children. Once again, they found positive results in terms of the quality of the couples' relationships as partners and parents, of parenting that was less harsh, of the children having fewer troubling behaviors, and in many cases, increases in income. Phil and Carolyn explained that the majority of current grant funding is siloed, with separate funding for children, for mothers, and for fathers, and and almost no programs taking a family systems view. They feel that the lack of a systemic perspective misses opportunities to take a broader perspective on family development and to work with parents, non parental caregivers, children, and fathers, which can lead to improved outcomes for parents and children, and be more efficient and cost effective. They referenced a study they are overseeing now that has also included employment support, since this is so integral in family functioning for low-income families. Their intervention work has been replicated in the U.K., Germany, Malta, and most recently in Israel. Philip A. Cowan, Ph.D. and Carolyn Pape Cowan, Ph.D. are clinical psychologists and professors Emeriti at University of California, Berkeley who have conducted three significant longitudinal research studies on couples relationships after the birth of the first child. They have received grants from the National Institute of Mental Health and the California Office of Child Abuse Prevention. Their three projects, the Becoming a Family Project, the Schoolchildren and Families Project, and the Supporting Father Involvement Project, which is an ongoing collaboration with Marsha Kline Pruett, Ph.D., M.S.L. ABPP at Smith College and Yale University, have studied the effects of interventions on the couples relationship, father involvement, child wellbeing and a number of other factors. Their group model for couples is being conducted throughout California, in Connecticut, Alberta Canada, England, and Malta. Carolyn and Phil Cowan received the the Distinguished Contribution to Family Systems Research award from the American Family Therapy Academy (AFTA) and the Best Research Article award, along with Marsha and Kyle Pruett, Ph.D., M.S.L. ABPP and Jessie Wong, Ph.D., from the Men in Families Focus Group of the National Council on Family Relations (NCFR). They are the authors of When Partners Become Parents: The Big Life Change for Couples, and there are “training the trainer” trainings in their Supporting Father Involvement program through Brazelton Touchpoints Center, which is part of the Division of Developmental Medicine at Boston Children's Hospital, a teaching hospital of Harvard Medical School.

In this inspiring episode of IDD Health Matters, Dr. Craig Escude engages in a profound conversation with Justin Steinberg, a research assistant at Stanford University, a board member of the American Academy of Developmental Medicine and Dentistry (AADMD), and a Special Olympics athlete and leader. At 33, Justin's journey is a testament to resilience and multifaceted talent. Key Highlights: Justin's Background: Justin shares his journey, highlighting his roles as a research assistant, a self-advocate representative, a percussionist in a symphonic band, and his involvement in Special Olympics. Despite being on the autism spectrum and visually impaired, Justin has achieved remarkable academic success, including a master's degree in special education. Advocacy and Public Speaking: Justin discusses his role as a Special Olympics Global Messenger, advocating for inclusion and fundraising. His advocacy extends to educating medical students on caring for people with intellectual disabilities and promoting respectful language. Health and Wellness: Justin opens up about his experiences with healthcare, emphasizing the importance of understanding and accommodating differing abilities. He shares insights into the challenges and benefits of telehealth, particularly for mental health services. Challenges in Transportation: A significant focus is placed on the challenges faced by individuals with disabilities in accessing reliable transportation, a crucial aspect of healthcare and social participation. Empowerment and Advice: Justin encourages listeners not to let labels define them and to find their niche in the world. He emphasizes treating people with disabilities as individuals first and understanding their unique needs and communication styles. Conclusion: This episode is a blend of personal narrative, advocacy, and practical advice, offering listeners a deeper understanding of the experiences and capabilities of individuals with intellectual and developmental disabilities. Justin's story is not just one of overcoming challenges but also of embracing and excelling in his diverse abilities. 

In this inspiring episode of IDD Health Matters, Dr. Craig Escude engages in a profound conversation with Justin Steinberg, a research assistant at Stanford University, a board member of the American Academy of Developmental Medicine and Dentistry (AADMD), and a Special Olympics athlete and leader. At 33, Justin's journey is a testament to resilience and multifaceted talent. Key Highlights: Justin's Background: Justin shares his journey, highlighting his roles as a research assistant, a self-advocate representative, a percussionist in a symphonic band, and his involvement in Special Olympics. Despite being on the autism spectrum and visually impaired, Justin has achieved remarkable academic success, including a master's degree in special education. Advocacy and Public Speaking: Justin discusses his role as a Special Olympics Global Messenger, advocating for inclusion and fundraising. His advocacy extends to educating medical students on caring for people with intellectual disabilities and promoting respectful language. Health and Wellness: Justin opens up about his experiences with healthcare, emphasizing the importance of understanding and accommodating differing abilities. He shares insights into the challenges and benefits of telehealth, particularly for mental health services. Challenges in Transportation: A significant focus is placed on the challenges faced by individuals with disabilities in accessing reliable transportation, a crucial aspect of healthcare and social participation. Empowerment and Advice: Justin encourages listeners not to let labels define them and to find their niche in the world. He emphasizes treating people with disabilities as individuals first and understanding their unique needs and communication styles. Conclusion: This episode is a blend of personal narrative, advocacy, and practical advice, offering listeners a deeper understanding of the experiences and capabilities of individuals with intellectual and developmental disabilities. Justin's story is not just one of overcoming challenges but also of embracing and excelling in his diverse abilities. 

Join Dr. Craig Escude in this inspiring episode of the IDD Health Matters podcast, recorded at the American Academy of Developmental Medicine and Dentistry conference in Denver, Colorado. Our special guest, Amanda Harnnauth, a poet, Special Olympics athlete, and an advocate for people with disabilities, shares her journey and insights. Amanda talks about her experiences in Special Olympics, her advocacy work, and how she uses poetry as a tool for self-expression and empowerment. She also discusses the importance of kindness, respect, and inclusion in healthcare and society, especially for individuals with intellectual and developmental disabilities. Tune in to hear Amanda's powerful story and her moving poetry, showcasing her unique perspective and unyielding spirit.

Join Dr. Craig Escude in this inspiring episode of the IDD Health Matters podcast, recorded at the American Academy of Developmental Medicine and Dentistry conference in Denver, Colorado. Our special guest, Amanda Harnnauth, a poet, Special Olympics athlete, and an advocate for people with disabilities, shares her journey and insights. Amanda talks about her experiences in Special Olympics, her advocacy work, and how she uses poetry as a tool for self-expression and empowerment. She also discusses the importance of kindness, respect, and inclusion in healthcare and society, especially for individuals with intellectual and developmental disabilities. Tune in to hear Amanda's powerful story and her moving poetry, showcasing her unique perspective and unyielding spirit. 

IDD Health Matters hosted by Craig Escudé, MD, FAAFP, FAADM features guests from across the globe who are leading the efforts to improve health, wellness and health equity for people with intellectual and developmental disabilities. Dr. Allen Wong has taught postdoctoral general dentistry for 30 years in ( Advanced Education in General Dentistry (AEGD) programs and is the director of Pacific's Hospital Dentistry Program and Director of Highland Hospital Restorative Implant program.  He has lectured nationally and internationally in the areas of special care dentistry, rotary endodontics, implant restorations, and minimally invasive dentistry.  He is active with Special Olympics Special Smiles program as one of the two Global Clinical Advisors, President-Elect American Academy of Developmental Medicine and Dentistry (AADMD) and Special Care Dentistry Association( SCDA). Immediate Past President of the National Caries Management By Risk Assessment (CAMBRA) Coalition. Learn more here: https://bit.ly/3m0Pec7

Chanel grew up in Detroit and adopted a love for writing at an early age. As young as 8 years old she participated in various writing and oratorical contests to hone her skills. As Chanel advanced through school she continued to participate in writing contests, published poems and participated in creative writing programs.Chanel graduated from the University of Michigan-Dearborn with a double major in Psychology and Criminal Justice and a minor in Communications. She had the dream of pursuing a law career but life took a different turn. Instead, she worked in the social services field, working with underprivileged youth in group homes and independent living programs. Chanel eventually came to the realization that she wanted to reach children much earlier in life. The goal being, to help alleviate some of the issues and problems that plagued the children within, her then, current position. It was at this time Chanel started working at the Georgia Institute of Technology – Child Study Lab, as a research Assistant.In her position at Georgia Tech, Chanel assisted with research to help in the early detection of Autism and other developmental delays. While working as a research assistant, she was co-author on scholarly articles that were published in journals such as: The Journal of Developmental Medicine and Child Neurology, Nature Communications and the Journal of Autism and Developmental Disorders.At Georgia Tech Chanel also became a co-instructor for the Universities freshman seminar course, for incoming first year students. During this time, she started to pursue her Masters in Public Policy at the Andrew Young School of Policy Studies, at Georgia State.Shortly after starting schooling for her Masters Degree, Chanel got married to her husband, Justin Miller. After getting married and having children, her career goals shifted. She put her masters degree on hold and left academia to become a stay at home mom. Once her children grew, she started the blog, Them 3 and Me, where she wrote about life as a stay at home mom who also homeschools. The blog led Chanel to start self publishing her own literary works, the first being, Kid De Cuisine: Hadasah's Breakfast Delights. Some of her other works include: 10 rockets Blast into Space and From Sand to Sea and Back Again.Connect with Chanel below:https://them3andme.comhttps://instagram.com/them3andme?utm_source=qr&igshid=NGExMmI2YTkyZg%3D%3Dhttps://www.facebook.com/profile.php?id=100090411283767&mibextid=ZbWKwLSupport the showFollow Moms Who Create:Instagram - https://www.instagram.com/momswhocreatepodcast/Facebook - https://www.facebook.com/momswhocreatepodcastMonthly Meeting Book Club - https://www.facebook.com/groups/momswhocreatebookclubWebsite - https://www.momswhocreate.com/

Wie lange darf gedaddelt werden, ohne dass es schon Abhängigkeit ist? Es hängt ganz vom Alter und qualitativen Kriterien ab, ob die „Dosis“ steigt und das Leben davon beeinträchtigt wird. Dr. Frank W. Paulus, leitender Psychologe der Klinik für Kinder- und Jugendpsychiatrie, Psychosomatik und Psychotherapie in Homburg / Saar gibt im Gespräch mit Dr. Axel Enninger zu bedenken, dass Sätze wie: „Lass das doch, das ist doch Quatsch!“ kaum weiterhelfen. Eher unterstützt das Umfeld durch Mediennutzungsregeln, Vorbildfunktion und die „Minimal-Intervention" Interesse zu zeigen. Im Hinterkopf behalten sollten Pädiater, dass eine weitere psychische Störung hinter exzessivem Gaming und Messaging stecken kann. Hilfreiche Informationen: Informationen für Fachpersonal und Eltern: Elternratgeber Internet der Bundespsychotherapeutenkammer: https://www.bptk.de/wp-content/uploads/2020/10/bptk-elternratgeber-internet.pdf EU-Initiative klicksafe https://www.klicksafe.de/ ADUPS – Ambulanz Digitalisierung Und Psychische Störungen der Kinder- und Jugendpsychiatrie am Universitätsklinikum des Saarlandes: https://www.uniklinikum-saarland.de/de/einrichtungen/kliniken_institute/kinder_und_jugendmedizin/kinder_und_jugendpsychiatrie/ambulanz_und_spezialsprechstunden/ambulanz_digitalisierung_und_psychische_stoerungen_adups Literatur Gaming: Paulus, F.W. (2022). Computerspielabhängigkeit bei Kindern und Jugendlichen. Consilium Themenheft. InfectoPharm Arzneimittel und Consilium GmbH, Heppenheim. www.infectopharm.com. ISSN 2365-7618. Paulus F.W. & Hessel, S. (2019). Digitale Spielzeuge, Bildschirme und Kindergesundheit in der zweiten Moderne. Kinderärztliche Praxis, 90(4), 248–255. Paulus, F.W., Lion, T. & Möhler, E. (2020). Computerspielabhängigkeit als Herausforderung: Der Psychotherapeut oder Arzt als Avatar des Patienten? pädiatrische praxis, 95, 1–15. Paulus, F.W. (2018). Kinderwelten im Wandel: von der analogen zur digitalen Welt. Kinderärztliche Praxis, 89(2), 121–128. Mall, V. & Paulus, F.W. (2018). Elektronische Medien und frühe Kindheit. Pädiatrie up2date, 13(02), 119-134, doi: 10.1055/s-0043-115286. Paulus, F. W. et al. (2018). Internet Gaming Disorder in children and adolescents: a systematic review. Developmental Medicine & Child Neurology. 60 (7), 645–659. doi: 10.1111/dmcn.13754. Weiterführende Literatur Cybergrooming und Cybermobbing: Paulus, F.W., Bédier, A., & Möhler, E. (2022). Tatort Internet: Cybergrooming als sexuelle Gewalt gegen Kinder und Jugendliche. pädiatrische praxis 98(1), 165–183. Paulus, F.W., Möhler, E., Ohmann, S. & Popow, C. (2020). Digitale Missachtung der Bedürfnisse und Rechte von Kindern und Jugendlichen: Cybermobbing. Kinder- und Jugendmedizin, 20, 238-246. Link zum Transkript: https://www.infectopharm.com/consilium/podcast/podcast-paediatrie/ Kontakte: Feedback zum Podcast? podcast@infectopharm.com Homepage zum Podcast: www.infectopharm.com/consilium/podcast/ Für Fachkreise: www.wissenwirkt.com und App „Wissen wirkt.“ für Android und iOS Homepage InfectoPharm: www.infectopharm.com Disclaimer: Der consilium – Pädiatrie-Podcast dient der neutralen medizinischen Information und Fortbildung für Ärzte. Für die Inhalte sind der Moderator und die Gäste verantwortlich, sie unterliegen dem wissenschaftlichen Wandel des Faches. Änderungen sind vorbehalten. Impressum: consilium ist eine Marke von InfectoPharm Arzneimittel und Consilium GmbH Von-Humboldt-Str. 1 64646 Heppenheim Tel.: 06252 957000 Fax: 06252 958844 E-Mail: kontakt@infectopharm.com Geschäftsführer: Philipp Zöller (Vors.), Michael Gilster, Dr. Markus Rudolph, Dr. Aldo Ammendola Registergericht: Darmstadt – HRB 24623 USt.-IdNr.: DE 172949642 Verantwortlich für den Inhalt: Dr. Markus Rudolph

Dean's Chat host, Dr. Jeffrey Jensen, is joined by Arizona College of Podiatric Medicine (AZCPM) faculty member Dr. David Jenkins and AZCPM 2nd year student, Ms. Alicia Stevens. Our discussion centers on two topics that are closely related, 1) Special Olympics and 2) the American Academy of Developmental Medicine and Dentistry (AADMD). Ms. Alicia Stevons chose the Arizona College of Podiatric Medicine partly because of its involvement with Special Olympics and is now the President of the AADMD at Midwestern University and is also the President of the American Limb Preservation Society at AZCPM. Dr. David Jenkins is no stranger to the world of Podiatric Medicine having been a past President of the American Academy of Podiatric Sports Medicine. He is a long-time faculty member both at the Des Moines University College of Podiatric Medicine and at the Arizona College of Podiatric Medicine. However, the discussion in this episode of Dean's Chat centers around his remarkable involvement in Special Olympics for the past 17 years culminating in his recent visit to Berlin, Germany for the Special Olympics World Summer Games. In Berlin, he was the recipient of the highest honor within Special Olympics, the Global Golisano Health Leadership Award. Join us for a great discussion on individuals with Intellectual and Developmental Disabilities (IDD) and the wonderful support and leadership Dr. David Jenkins and Midwestern University's President, Dr. Kathleen Goeppinger, have provided to the community. This episode emphasizes the need for a multidisciplinary curriculum that includes various healthcare professions, such as podiatry, speech therapy, and pharmacology, to develop effective communication skills for working with individuals with intellectual disabilities. They mention that Midwestern University is an ideal venue for such a curriculum due to its diverse range of healthcare programs. They discuss an interdisciplinary event where students from various healthcare programs come together to share their knowledge and expertise. Physical therapy students, for example, participate and contribute their knowledge and skills related to fitness and physical therapy. This collaboration allows students from different programs to learn from each other and contribute their unique perspectives. Dental students also participate in the event by providing dental checkups, showcasing the importance of oral health in overall healthcare. This demonstrates how different healthcare programs can come together to address various aspects of patient care. Overall, the podcast emphasizes the value of interdisciplinary collaboration in healthcare. By bringing together students from different programs, the event allows for the sharing of knowledge and the development of a comprehensive approach to patient care. This interdisciplinary nature is seen as beneficial for both the students involved and the patients they serve. Dean's Chat Website  Dean's Chat Episodes  Dean's Chat Blog Why Podiatric Medicine?  Become a Podiatric Physician   

Is our healthcare system accessible for people with disabilities or just compliant? This week we talk with Dr. Priya Chandan, MD, MPH, who is Vice President of Healthcare Quality and Analytics at Kramer Davis and Clinical Associate Professor in the Division of Physical Medicine & Rehabilitation at the University of Louisville School of Medicine; and Dr. Emily Noonan, PhD, MA, who is Assistant Professor in Undergraduate Medical Education at the University of Louisville School of Medicine. We discuss disability and medicine, which touches all clinicians regardless of specialty. Priya and Emily describe how ableism and the lack of accessibility create barriers to care for people with disabilities, and they discuss their curriculum initiatives that engage self-advocates to teach students about disability and health care. Learn more about their work to improve health care for people with intellectual/developmental disabilities here. Do you have comments or questions about Faculty Feed? Contact us at FacFeed@louisville.edu. We look forward to hearing from you.

Resumo da semana: - Risco de demência é maior em pessoas com sinais anteriores de sofrimento psicológico (JAMA Network Open) - Novo exame de sangue detecta neurodegeneração da doença de Alzheimer, distinguindo-a de outras demências (Brain) - Medicamentos para epilepsia podem aumentar o risco de Parkinson, com associação mais forte observada para o valproato de sódio (JAMA Neurology) - Estimular o tronco cerebral pode tornar os implantes cocleares mais eficazes (Nature) - Terapia genética restaurou o sistema imunológico em crianças com doença rara (The New England Journal of Medicine) - Diabetes materno durante a gravidez aumenta o risco de transtornos do neurodesenvolvimento na prole (Developmental Medicine & Child Neurology) - FDA aprova novo medicamento para HIV para adultos com opções limitadas de tratamento (Food and Drug Administration) - O poder das relações entre médicos: pacientes podem receber tratamento melhor se seu médico de atenção primária e especialistas estudaram juntos (JAMA Internal Medicine) Veja mais notícias em news.med.br Este podcast é oferecido por HiDoctor – o software médico mais usado em consultórios e clínicas no país.

Episode 6 unpacks what neuropsychological evaluations are with our guests, Dr. Jason Fogler and Dr. Beth Jerskey.Follow us on Instagram @ReidConnectEdPodcast and Twitter @ReidConnectEdcShow notes & Transcripts: https://reidconnect.com/reid-connect-ed-podcast*Please note that different practitioners may have different opinions- this is our perspective and is intended to educate you on what may be possible.About our guests for this episode:Jason Fogler, PhDDr. Jason Fogler, M.A., Ph.D is a senior staff psychologist; Co-Director of the ADHD Program and Training Director of the LEND (Leadership Education in Neurodevelopmental & related Disabilities) Program in the Division of Developmental Medicine at Boston Children's Hospital; and an Assistant Professor of Pediatrics and Psychology at Harvard Medical School. He co-leads his Division's Clinical Outcomes Workgroup to improve care for what has come to be known as "complex ADHD": Attention Deficit/Hyperactivity Disorder with one or more co-occurring conditions, including mood and anxiety disorders, learning disabilities, disruptive behavior disorders, and posttraumatic stress. He has been providing neuropsychological testing, organizational skills training, and parent guidance for children and teens with ADHD for over a decade.Please note that the views proposed in this podcast episode by Dr. Fogler are not necessarily representative of the views and policies of Boston Children's Hospital, Harvard Medical School, or the Maternal Child Health Bureau.Beth Jerskey, PhDDr. Beth Jerskey is the Director of Research and Professional Development, Director of Clinical Training, and Director of Autism Spectrum Disorder Services at the Boston Child Study Center. Dr. Jerskey is also an Adjunct Assistant Professor in the Department of Psychiatry and Human Behavior at the Alpert Medical School of Brown University. Dr. Jerskey's research centers around ethical considerations in the field of psychology and currently she sits on the Massachusetts Autism Commission's subcommittee for children Birth – 14 years old, is the APA Federal Advocacy Coordinator for the state of Massachusetts, and is Chair of the Rhode Island Psychological Association's Ethics Committee. Trained in both pediatric and adult neuropsychology, Dr. Jerskey has clinical interest primarily with children ages 2-14 and she has a specialty in the diagnosis of Autism Spectrum Disorders.Please note that the views proposed in this podcast episode by Dr. Jerskey are not necessarily representative of the views and policies of Boston Child Study Center or the Alpert Medical School of Brown University.The Reid Connect-Ed Podcast is hosted by Alexis Reid and Dr. Gerald Reid, produced by Lauren Baiza, Communications and Marketing Coordinator is Colin Feheley, and original music is written and recorded by Gerald Reid.Listen on SpotifyListen on Apple Podcasts

In this episode, Dr. Jason Fogler joins Alexis Reid to discuss Executive Function. Both Dr. Fogler and Alexis Reid work with individuals, families, caregivers, and systems who are aiming to improve and support executive function skills and in this episode, they break down some of the history, challenges, and benefits of executive function and ADHD.Show notes & Transcripts: https://reidconnect.com/reid-connect-ed-podcastFollow us on Instagram @ReidConnectEdPodcast and Twitter @ReidConnectEd*Please note that different practitioners may have different opinions- this is our perspective and is intended to educate on what may be possible to support individuals, families, and systems in learning and life.The Reid Connect-Ed Podcast is hosted by Alexis Reid and Dr. Gerald Reid, produced by Lauren Baiza, Communications and Marketing Coordinator is Colin Feheley, and original music is written and recorded by Gerald Reid.In this episode Alexis is joined by...Dr. Jason Fogler, M.A., Ph.D is a senior staff psychologist; Co-Director of the ADHD Program and Training Director of the LEND (Leadership Education in Neurodevelopmental & related Disabilities) Program in the Division of Developmental Medicine at Boston Children's Hospital; and an Assistant Professor of Pediatrics and Psychology at Harvard Medical School. He co-leads his Division's Clinical Outcomes Workgroup to improve care for what has come to be known as "complex ADHD": Attention Deficit/Hyperactivity Disorder with one or more co-occurring conditions, including mood and anxiety disorders, learning disabilities, disruptive behavior disorders, and posttraumatic stress. He has been providing neuropsychological testing, organizational skills training, and parent guidance for children and teens with ADHD for over a decade. Please note that the views proposed in this podcast episode by Dr. Fogler are not representative of the views and policies of Boston Children's Hospital.

1: Dana Tischler, PT, DPT, MS, PCS, Doctor of Physical Therapy Program, Rocky Mountain University of Health Professions, Provo, UT, USA “Quality of Life, Participation, and Individualized Support in a Community-Based Yoga Class: A Case Series” Physical therapy researchers in Utah have been trialling a ten-week yoga training class as therapy for children with impairments. In it, they assessed quality of life and participation with the help of doctor of physical therapy students who gave the children individualized support. 2: Noelle Moreau, PT PhD, Louisiana State University Health Sciences Center, New Orleans, LA, USA Safety and Feasibility of 1-Repetition Maximum (1-RM) Testing in Children and Adolescents With Bilateral Spastic Cerebral Palsy New insights about optimal use of the 1-Repetition Maximum (1-RM) test have emerged from a study among children with bilateral spastic cerebral palsy. 3: Pamela Tucker PT DPT, Upstate Medical University Hospital, Syracuse, New York, USA Effectiveness of Robotic-Assisted Gait Training and Aquatic Physical Therapy in a Child With Long-Chain 3-Hydroxyacyl-CoA Dehydrogenase Deficiency: A Case Report A case study of a child with the rare, variable condition Long-Chain 3-Hydroxyacyl-CoA Dehydrogenase Deficiency (L-CHAD) brings encouragement that practical management strategies can bring big benefits. 4: Kari S. Kretch PT, DPT, PhD, Division of Biokinesiology and Physical Therapy, University of Southern California, Los Angeles, CA Developmental Surveillance Milestone Checklist Updates: “Learn the Signs. Act Early”—Implications for Physical Therapists Physical therapist’s perspective on the Centers for Disease Control updated developmental assessment milestones. 5: Ramona ClarkeBExSci/BPhty, Griffith University, Gold Coast, Queensland, Australia International Delphi Recommendations for Pediatric Lower Limb Neurological Test Protocols for Muscle Strength, Reflexes, and Tactile Sensitivity An assessment of lower limb neurological testing in children, with recommendations on muscle strength, reflexes and tactile sensitivity. 6: Andrina Sabet PT ATP, Cleveland Clinic Children’s Hospital for Rehabilitation, Cleveland, Ohio, USA ON Time Mobility: Advocating for Mobility Equity And: Darrien Fann, Patient Self-Advocate, Cleveland OH, USA Equality in mobility—irrespective of physical impairment—is the focus of a new program of information and communication aimed at establishing mobility equity as a human right 7: Hércules Ribeiro Leite, Universidade Federal de Minas Gerais, Belo Horizonte, Brazil Research on Children With Cerebral Palsy in Low- and Middle-Income Countries World Health Organisation data on cerebral palsy services in low- and middle-income countries (discussed at the recent 75th Annual Meeting of the American Academy for Cerebral Palsy and Developmental Medicine) identified big geographical disparities and key areas for improvement in access to good therapy and research. 8: Sudha Srinivasan PT PhD, Physical Therapy Program, Department of Kinesiology, University of Connecticut, Storrs, CT, USA Feasibility of Using Joystick-Operated Ride-on-Toys to Promote Upper Extremity Function in Children With Cerebral Palsy: A Pilot Study While children who can’t walk can benefit from using a powered ride-on toy, those who have impairments not severe enough to prevent walking altogether can also benefit. This is according to a new study of powered mobility assistance among children with hemiplegic cerebral palsy using a mobility toy controlled by a single joystick. 9: Sofie Meijer MSc HU University of Applied Sciences, Master of Pediatric Physical Therapy program, Utrecht, the Netherlands Reliability of Using a Smartphone Application to Objectify Skull Deformation Research using a smartphone app called: the Skully Care App shows that smartphones can be used to quantify infant skull deformation. 10: Carole A Tucker, PT, PhD, Associate Dean of Research, Chair of Physical Therapy, University of Texas Medical Branch, Galveston, TX, USA Enhancing the Content Validity of Self-Reported Physical Activity Self-Efficacy in Adolescents: A Qualitative Study A study of self-efficacy in adolescents reports that measures to increase self-confidence among youngsters can help them achieve physical therapy goals.

Are you considering adopting a baby? On today's show we talk about the legal and medical risk factors you need to consider. We talk with Amy Wallas Fox about the legal risk factors in infant adoption. Ms. Fox is an attorney partner of Claiborne Fox Bradley Goldman, a North Carolina and Georgia law firm and a fellow in the American Academy of Adoption and Assisted Reproduction Attorneys. We talk with Dr. Lisa Prock, MD, MPH, about the medical risk factors in infant adoption. Dr. Prock is the Director of the Developmental Medicine Center and Associate Chief in the Division of Developmental Medicine at Boston Children's Hospital and Harvard Medical School.In this episode, we cover:How can a hopeful adoptive parent find a baby to adopt in the US?What is the difference between an adoption agency, adoption attorney, adoption facilitator, and adoption consultant?What is meant by an adoption-friendly state? Is there a state that is better than others to try to find an expectant mom who may want to place her child for adoption?What are the different time periods that expectant parents or birth parents have to change their mind?Adoption is covered by state law.Is it possible for a birth family to get the child back after an adoption is complete?What are some of the legal issues with birth fathers—both identified and unidentified?How does the Indian Child Welfare Act impact legal risk in adoption? What are some red flags that an expectant mom may not go through with the adoption plan and decide to parent?What are the most dangerous drugs or substances that an expectant woman can use during pregnancy as far as impact on the fetus and baby?What is the impact of alcohol on a fetus and baby, both short term and long term?What is the impact of opiates (prescription and non-prescription) on a fetus and baby, both short term and long term?What is the impact of methadone or suboxone on a fetus and baby, both short term and long term?What is the impact of heroin on baby, both short term and long term?What is the impact of methamphetamines on a baby, both short term and long term?Long term impact of prenatal exposure to cocaine or crack?If the birth mother stopped using drugs and stopped drinking when she found out she was pregnant, will the baby be spared the worst of the impact?What are the risks to the baby if the mother has Hepatitis B or Hepatitis C, HIV, syphillis?Is ADHD inheritable? Is there a gene for ADHD?Do certain mental illnesses have a genetic connection? What is the likelihood that the child will have depression, anxiety, bi-polar, schizophrenia, or other mental illnesses if the birth parents had the illness? Should adoptive parents worry if the expectant mom has not had prenatal care?This podcast is produced  by www.CreatingaFamily.org. We are a national non-profit with the mission to strengthen and inspire adoptive, foster & kinship parents and the professionals who support them. Creating a Family brings you the following trauma-informed, expert-based content:Weekly podcastsWeekly articles/blog postsResource pages on all aspects of family buildingPlease leave us a rating or review RateThisPodcast.com/creatingafamilySupport the show

Are you interested in neurosurgical interventions for cerebral palsy or have you considered consulting with a physiatrist for care for your child? Listen up to learn more! In Episode 10 of "Let's Talk CP" host, Jen Lyman, talks with physiatrist, Dr. Debbie Song and neurosurgeon, Dr. Marcie Ward, from Gillette Specialty Healthcare about interventions neurosurgeons and physiatrists use to treat the symptoms of cerebral palsy, including baclofen pumps and selective dorsal rhizotomy (SDR). They also discuss how this team works together with families in their approach to treatment and interventions at Gillette Children's, to focus on maximizing function and participation for their young patients. Gillette Specialty Healthcare in Saint Paul Minnesota is one of the world's top cerebral palsy centers, home to leading specialists in treatments for cerebral palsy, including orthopedics, neurology and neurosurgery, as well as operating one of the world's busiest and most respected clinical gait and motion analysis centers. Dr. Marcy Ward is a pediatric physiatrist, short for Pediatric Physical Medicine and Rehabilitation Physician, at Gillette Specialty Healthcare. She treats pediatric patients who have cerebral palsy, spina bifida, muscular dystrophy, brain injuries, spinal cord injuries and other conditions that result in childhood-onset disability. She is a member of the American Academy of Physical Medicine and Rehabilitation, the American Academy for Cerebral Palsy and Developmental Medicine, and the American Academy of Pediatrics. Debbie Song is a pediatric neurosurgeon at Gillette Specialty Healthcare where she evaluates and treats patients with a wide range of brain and spinal cord pathologies including tumors, Chiari malformations, craniosynostosis, hydrocephalus, and cerebral palsy and spina bifida. She is a member of Congress of Neurological Surgeons, American Association of Neurological Surgeons. We hope you enjoy this episode and don't forget to subscribe to "Let's Talk CP" on your favorite podcast platforms including Apple podcasts, iHeartRadio, Spotify, Google podcasts, Stitcher and many more.

Have you wondered if gait analysis might be helpful for you or your child or how gait patterns develop in someone with cerebral palsy across the lifespan? Let's Talk CP host, Cynthia Frisina talks with Dr. Tom Novachek and Dr. Andrew Georgiadis from Gillette Children's about gait, gait analysis, and what makes Gillette Children's such a special place in this new 2022 episode of "Let's Talk CP." Gillette Children's in Saint Paul Minnesota is one of the world's top cerebral palsy centers, home to leading specialists in treatments for cerebral palsy, including orthopedics, neurology and neurosurgery, as well as operating one of the world's busiest and most respected clinical gait and motion analysis centers. Using innovative computer technology, gait and motion analysis captures movements, muscle activity and forces that the eye can't see and helps clinicians understand and recognize how orthopedic, neurological and muscular conditions can hinder motions that are critical to daily living. This  information can lead to better treatment decisions and outcomes for patients and their families. Tom Novacheck, MD, is a pediatric orthopedic surgeon and Associate Medical Director of the James R. Gage Center for Gait and Motion Analysis at Gillette.  He  is also the current president of the American Academy for Cerebral  Palsy and Developmental Medicine www.aacpdm.org  Dr. Novachek specializes in treating cerebral palsy, scoliosis or other complex orthopaedic conditions in children and adolescents. Dr. Novacheck's research and education activities for residents, fellows, and healthcare professionals have focused primarily on outcomes studies of management of gait disorders in individuals with cerebral palsy, development of motion analysis testing methods, and the biomechanics of running. Dr. Andrew Georgiadis  is a pediatric orthopedic surgeon and Clinical Manager of Center for Gait & Motion Analysis at Gillette. Dr. Georgiadis has a particular clinical interest in congenital conditions of the hip and lower extremities and in pediatric orthopaedic trauma, as well as decision-making for patients with cerebral palsy. Learn more about Gillette Children's and Dr. Novachek and Dr. Georgiadis here  https://www.gillettechildrens.org Don't forget to subscribe to "Let's Talk CP" on your favorite podcast platforms including Apple podcasts, iHeart Radio, Spotify, Google podcasts, Stitcher and many more.

The Promise of Discovery Season 2, Episode 5: The estimated prevalence of children in the U.S. with autism spectrum disorder has increased in 2021. Principal investigators from the Vanderbilt Kennedy Center's TRIAD lead tracking in Tennessee through a grant from the CDC's Autism and Developmental Disabilities Monitoring (ADDM) Network. The national tracking study is discussed in this episode. https://vkc.vumc.org/vkc/triad/autismdata/ VKC Researchers: Zachary E. Warren, Ph.D., Director, Division of Developmental Medicine, Vanderbilt Department of Pediatrics; Professor of Pediatrics, Psychiatry & Behavioral Sciences, and Special Education; Executive Director, VKC TRIAD Alison Vehorn, M.S., Clinical Research Coordinator, TRIAD

Today I welcome Dr. Vipul Shah, Medical Director, R P Shah Memorial trust against Covid 19. Vipul Shah is the Medical Director and Consultant for pediatric orthopedics, pediatric spine and scoliosis at R .P. Shah Memorial Trust for children with Disabilities in Lucknow, India.  He is Medical Director of the R P Shah Memorial trust against Covid 19.  A graduate of GSVM Medical College, Kanpur, India He is also Patient Care Coordinator for UNICEF.  He was the 1st Non American candidate to win the prestigious CART Fellowship of the American Academy of Cerebral Palsy and Developmental Medicine.  He is a Mentor of the American Academy of Cerebral Palsy and Developmental Medicine since 2017.

Today I welcome Dr. Vipul Shah, Medical Director, R P Shah Memorial trust against Covid 19. Vipul Shah is the Medical Director and Consultant for pediatric orthopedics, pediatric spine and scoliosis at R .P. Shah Memorial Trust for children with Disabilities in Lucknow, India.  He is Medical Director of the R P Shah Memorial trust against Covid 19.  A graduate of GSVM Medical College, Kanpur, India He is also Patient Care Coordinator for UNICEF.  He was the 1st Non American candidate to win the prestigious CART Fellowship of the American Academy of Cerebral Palsy and Developmental Medicine.  He is a Mentor of the American Academy of Cerebral Palsy and Developmental Medicine since 2017.

IntellectAbility - https://replacingrisk.com/ +(1) 727-437-3201 Facebook - @IntellectAbility Twitter - @ReplacingRisk Dr. Craig Escudé, MD is a Board-certified Fellow of the American Academy of Family Physicians and the American Academy of Developmental Medicine. He has over 20 years of clinical experience providing healthcare for people with Intellectual and Developmental disabilities and is the author of “Clinical Pearls in IDD Healthcare” (https://amzn.to/3CbeCDp) and “The Curriculum in IDD Healthcare” (https://replacingrisk.com/store/). Dr. Escude assumed the role of President of IntellectAbility in 2018. We address the importance of educating healthcare providers. Specifically, what (and how) you can do as family members, loved ones, and supporters of those with Intellectual and/or Developmental Disabilities (IDD). Craig explains physicians are not trained to work with patients who have IDD. He shares his personal experiences and highlights what needs to change. We touch on abuse and neglect. As parents we'll often have a feeling something is off - we shouldn't be quick to disregard it. Medication may be necessary, but shouldn't be the immediate go-to when something suddenly changes. What environmental factors could be affecting the individual? Craig gives us concrete examples of what to look for. Helping your child live "independently" doesn't mean you have to stop advocating for them. Craig highlights the importance of having a "Health Passport". "Clinical Pearls in IDD Healthcare" has a version, or you can download this one from the Illinois Council on Developmental Disabilities (https://static1.squarespace.com/static/5cf7d27396d7760001307a44/t/5e9e1347fc832d0a6864a162/1587417930926/BetterCommunication.Health-Resume.pdf). Found on the American Academy of Developmental Medicine and Dentistry. Resources mentioned during the interview: American Academy of Developmental Medicine and Dentistry - https://www.aadmd.org/ Developmental Disabilities Nurses Association - https://ddna.org/ Friends for Life podcast (Medical Mondays) - https://friendsforliferc.com/podcast/ As an Amazon Associate, I earn commissions from qualifying purchases. For more information about True North Disability Planning you can find us here: Web: https://truenorthdisabilityplanning.com/ Blog - https://ejorgensenwordpresscom.wordpress.com Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning Waypoints - https://waypoints.substack.com/ Facebook: @TrueNorthDisabilityPlanning Twitter: @NeedsNavigator Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning --- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app --- Send in a voice message: https://anchor.fm/abcs-disability-planning/message

In 2014, the clinics of three Long Island Human Services agencies: Developmental Disabilities Institute (DDI), Family Residences and Essential Enterprises (FREE), and United Cerebral Palsy Association of Greater Suffolk Inc. (UCP), formed Long Island Select Healthcare, Inc. (LISH). Our first day of operations providing low income medical services in Long Island, NY and the surrounding area as Long Island Select Healthcare, Inc. was on August 22, 2016.Long Island Select Healthcare provides services to all of those who are in need of medical services, regardless of their ability to pay or if they need uninsured primary care services in Long Island, NY. The uninsured are charged for services on a board-approved program for sliding scale health services in Long Island, NY and Suffolk County, NY, which is based on a patient's family income and size and we are also financed through a mix of Medicaid and Medicare. A large portion of our 6,000 patients served include Intellectual/Developmentally Disabled (ID/D) individuals, we provide primary, behavioral health, dental, specialty services and OT/PT/speech therapy within our organization. We are a Patient Centered Medical Home that places focus not only on what our patients' medical needs are but focus on the whole patient experience, seeking what barriers our patients may face that may negatively impact their outcomes. Through screenings such as PRAPARE, we will work with patients and assist with any linkage to resources that they may need to support their overall well-being.Dr. James R. Powell, Jr. is the Chief Executive Officer for LISH. Dr. Powell is a board-certified Internist as well as the Medical Director for both DDI and UCP of Suffolk.. He is currently on staff at Mather Memorial Hospital, St. Charles Hospital, and Peconic Bay Medical Center.A former board member of the American Academy of Developmental Medicine and Dentistry, Dr. Powell has presented lectures nationwide in which he has championed the healthcare needs of the underserved. Thanks to LISH's experience with a pre-COVID-19 telehealth program he has been quoted in journals and lectured on topics regarding virtual care and the need for long term sustainability. Tune in for this sensible conversation at TalkRadio.nyc or watch the Facebook Livestream by Clicking Here.Show NotesSegment 1Tommy introduces James R. Powell Jr. Chief Executive Officer for LISH. Tommy gives Powell's background and James shares how he was lead to the non-profit profession. He tells how he thought he knew about patience but he realized that he had so much to learn. He shares his passion to take care of others and share his knowledge and learning experience through his work. Powell tells how his passion to help others led him to go from private practice to non-profit organizations. Tommy connects that Powell's passion may come from the feeling of helping others who need it most. Segment 2Tommy gives the background for LISH and all the organizations it is connected to. James tells how LISH came to be. He tells about the three health centers that were in need and how they came up with a separate entity that could serve all three companies. James talks about how important the board was in creating this new organization. He talks about how the changing of dynamics and different cultures played into forming a unified organization. James talks about being conscious about where their care comes from and the quality of care the patients get. James further explains how they do not stop showing concerns for their patients as he explains how they prioritize after-care. Segment 3James explains how they collaborate with bigger health care providers. James explains partners and how they set up programs to keep connected to services outside their own organization. Tommy explains how reaching out helps organizations keep connections with other organizations for support. James tells about an in-person event to celebrate five years of growth, to showcase the partners efforts in making a difference in the nonprofit community. The nonprofit organizations deal with budget strain and James explains his goals in aiding that process towards growth for the organizations to make the process easier. Tommy talks about the change and ingenuity that James and his organization have come up with over the years and how the changes they have made have helped so many. Segment 4Tommy asks how James reaches out to other companies to receive support and partnership. Tommy reaches out to see different ways to connect with other organizations to network and share support. James shares he wants his organization to gather more donors and solidify their partnerships. James shares contacts for organizations and individuals who need care or want to be a part of James' nonprofit organization. James shares the partnerships the company has now and how that supports and expands the outreach his organization reaches.

In this podcast, Diane Damiano discusses her paper 'Early intervention evidence for infants with or at risk for cerebral palsy: an overview of systematic reviews'.   The paper is available here: https://onlinelibrary.wiley.com/doi/10.1111/dmcn.14855   Subscribe to our channel for more: https://bit.ly/2ONCYiC   ___ Listen to all our episodes: https://bit.ly/2yPFgTC   ___ DMCN Journal: Developmental Medicine & Child Neurology (DMCN) has defined the field of paediatric neurology and childhood-onset neurodisability for over 60 years. DMCN disseminates the latest clinical research results globally to enhance the care and improve the lives of disabled children and their families.   DMCN Journal - https://onlinelibrary.wiley.com/journal/14698749   ___ Mac Keith Press: Mac Keith Press exists to improve the care of disabled children by extending the knowledge and understanding of developmental medicine and paediatric neurology. We publish the journal Developmental Medicine and Child Neurology (DMCN), and books in related subject areas. These are of interest to researchers, health professionals, clinicians, therapists, parents and all involved in the care of children and young people with neurodevelopmental conditions. Mac Keith Press - http://www.mackeith.co.uk   ___ Find us on Twitter! @mackeithpress - https://twitter.com/mackeithpress

On this episode, I have the honor of talking with Wendy Pierce, MD, a pediatric physiatrist at Colorado Children's Hospital about physiatry, also known as Physical Medicine and Rehabilitation. This fantastic field of medicine can be helpful for individuals with cerebral palsy across with lifespan, but it has a confusing name and sometimes a confusing job description. So we set out to help listeners better understand what a physiatrist does. We discuss the history of physiatry, the conditions they treat, the types of medical interventions they utilize, and what the practice of physiatry looks like for individuals with cerebral palsy.  Dr. Wendy Pierce is board certified in Physical Medicine and Rehabilitation with a pediatric subspecialty.  Her focus is on improving the function of children with chronic illnesses including cerebral palsy.  She earned her medical degree from Northwestern University and completed her residency at Baylor College of Medicine. She started at Children's Hospital Colorado, where she completed a fellowship in pediatric rehabilitation medicine. Dr. Pierce began her career at Rady Children's Hospital San Diego then in April 2014 started at Children's Rehabilitation Clinic in Colorado Springs.  She is faculty at the University of Colorado. She has served on several committees of the American Academy for Cerebral Palsy and Developmental Medicine.  She is a member of the data review team for the clinical gait lab at Children's Hospital and serves on the board of the Commission of Motion Lab Accreditation.             She and her husband Aaron have volunteered for the adaptive ski program at Children's Hospital Colorado, which is how they met.  She serves as bus staff and medical consultant.  Her husband is a sit ski instructor for the program.   Her husband is a mechanical engineer by training and now works for Numotion as an Assistive Technology Professional.  They have 2 happy girls – Penelope age 4 and Abigail age 2 and 1 cat and 6 hens. Resources Discussed:  Where to find a physiatrist: https://members.aapmr.org/AAPMR/AAPMR_FINDER.aspx or  https://www.aacpdm.org/providers/ National Sport Center For the Disabled:  https://nscd.org/    

Senior fertility specialist, Professor of Obstetrics & Gynaecology at UNSW and previous the Chair and Head of the Academic Unit for Reproductive and Developmental Medicine, Professor William Ledger discusses assisted conception with Michelle (PVOGS).

The Ethics Toolkit is a series within Essential Ethics designed to give clinicians a clear understanding of the tools that bioethicists use to think through complex problems. In this episode we discuss what shared decision-making means and consider the ethical principles that underpin it. We then consider how this should include children and adolescents as emerging decision-makers. Host, Prof John Massie, is joined by Dr Giuliana Antolovich, Paediatrician with Developmental Medicine at The Royal Children's Hospital, Melbourne (RCH), and Prof Clare Delany, Senior Ethicist with the Children's Bioethics Centre at RCH and Professor at the University of Melbourne School of Population and Global Health.

How do we ration limited healthcare resources without discriminating against people with disabilities? Host, Professor John Massie enlists Dr Giuliana Antolovich, a paediatrician working in Developmental Medicine at the RCH, to shed light on this important topic. Zooming in to the conversation is ethicist Professor Lynn Gillam.