Living Well with Lipedema

Carrie holds a bachelor's degree in Nutritional Medicine from Paramount College in Western Australia, where she graduated at the top of her class. She is also qualified in Functional Nutrition and Lifestyle Medicine through the Functional Nutrition Alliance in the United States and is a certified Keto Coach. Residing in sunny Western Australia, Carrie enjoys spending her weekends outdoors, fishing, swimming, or camping with her husband and six children.

Today, I'm sharing an excerpt from an interview with Dr. Paula Stewart from our 2017 Lipedema & Keto Worldwide Summit. Dr. Stewart, board-certified in Physical Medicine & Rehabilitation, specializes in general physical rehabilitation, neurologic rehabilitation, and comprehensive care for patients with cancer and lymphedema. In this excerpt, Dr. Stewart discusses how she utilizes the unique properties of water and aquatic exercise to benefit her patients with lymphedema and lipedema.

Today, I'm sharing an excerpt from an interview with Dr. Joanna Dudek, a psychologist and researcher in Poland, recorded at the 2016 Lipedema Worldwide Summit. Dr. Dudek, known for her groundbreaking research on lipedema, discusses the challenges of loving one's body and the practice of acceptance. She explains how this acceptance can enhance quality of life and shares methods to achieve it.

The International Lymphatic Disease and Lymphedema Patient Registry & Biorepository plays a crucial role in advancing lipedema research and raising awareness about the condition. Overseen by the LE&RN Board of Directors and the Institutional Review Board of Stanford University, led by Dr. Stanley Rockson, the registry aims to expand our understanding of lipedema. Participation, particularly from women with lipedema, is essential to enhance the knowledge base surrounding this disease.

Discover the importance of self-care for individuals with lipedema in our latest episode. Learn what self-care entails and why it's crucial for maintaining a high quality of life while managing lipedema. Tune in for valuable insights and practical tips to enhance your well-being.

Today, Dr. Carol Rowsemitt discusses Famine Response Hypothyroidism, its impact on women with lipedema, and its effects even when following a keto diet.Carol “Rosey” Rowsemitt, PhD, RN, FNP, was a practicing scientist studying ecological physiology (BA in chemistry, PhD in biology) before becoming a family nurse practitioner.Specializing in weight management since 2003, Rosey understands that the body often protects against weight loss by decreasing metabolism.Her passion is helping patients and providers think about thyroid function more broadly and recognizing that typical thyroid testing may not provide the full picture.

- Today I'd like to tell you about a study by Dr. Ahmet Karacalar, a plastic surgeon in Turkey who performs liposuction on patients with lipedema.- He wrote this book during the lockdowns in 2020 and was published in May 2023.- The title of his book is Lipoedema: An Evolutionary Mismatch.- He presents archaeological evidence that lipedema is an “evolutionary mismatch” that dates back to the agricultural revolution.- He then goes on to share with readers how a modern adaptation of the hunter-gatherer lifestyle may be the best treatment option for lipoedema.Helpful links:Lipedema Simplified Calendar: https://lipedema-simplified.org/Blog:https://lipedema-simplified.org/blog/

In January 2017, Dr. Melissa Garcia Caballero joined Prof. Peter Carmeliet's prestigious laboratory in Leuven, Belgium, to investigate the therapeutic role of ketone body supplementation in lymphedema.The exciting findings from this study garnered interest among clinicians and led to the initiation of a collaborative translational clinical Phase II trial (KetoLymph) to test the ketogenic diet's therapeutic potential in cancer patients who develop lymphedema.Dr. García Caballero, co-author of over 35 scientific publications, is also a professor at the University of Málaga in Spain.

Today, Dr. Siren Nymo discusses the LIPODIET study conducted in Norway and its remarkable results.Dr. Nymo is an authorized clinical nutritionist with a PhD in obesity and metabolism from the Norwegian University of Technology and Science (NTNU).She is currently an associate professor at the university and is pursuing a post-doctorate at Nord-Trøndelag Hospital Trust.Her current research focuses on the long-term follow-up after bariatric surgery.

Today, I'm sharing an excerpt from an interview with Dr. Stanley Rockson from our Lipedema Worldwide Summit in 2016.Dr. Rockson is the Director of the Stanford Center for Lymphatic and Venous Disorders, Chief of Consultative Cardiology, and Professor of Lymphatic Research and Medicine at Stanford School of Medicine.In this excerpt, Dr. Rockson describes the lymphatic system in the brain.

Today, we explore research conducted by Joanna Dudek and colleagues from Poland, published in 2018.The authors suggest that because lipedema is a chronic condition, it can lead to feelings of helplessness and depression.Their findings indicate that both appearance-related distress and depression significantly impact the quality of life.This important research highlights the need to understand how lipedema affects all aspects of women's lives and emphasizes the necessity of combating weight bias in healthcare and society.

- Today's episode features an excerpt from an interview with Kim Duren, recorded during our Lipedema & Keto Worldwide Summit in 2017.- In this segment, Kim recounts her lifelong struggle with weight since high school and how traditional methods failed her.- She explains how her life transformed after discovering her lipedema diagnosis and adopting a ketogenic diet.

- Today, Mende Staggs shares her ketogenic diet plan and the foods she enjoys.- Mende began her keto journey in August 2016 after attending the first Keto for Lipedema webinar.- After a lifetime of unsuccessful diets and a recent lipedema diagnosis, she doubted that changing her diet would help—but she was pleasantly surprised.- Living on a small farm in rural southwest Missouri, Mende owns a bakery and catering business and loves to share her keto success story to inspire others on their own journeys.

- Today I'd like to tell you about a study by several researchers and clinicians in Italy, including Roberto Cannataro, who spoke at one of our previous H2H events.- The title of this article is Observational Study on a Large Italian Population with Lipedema: Biochemical and Hormonal Profile, Anatomical and Clinical Evaluation, Self-Reported History.- It was published in the peer-reviewed journal International Journal of Molecular Sciences in January 2024.- This work aims to describe the clinical, instrumental, and blood test results of a large population of women affected by lipedema in the lower body.

- Today's episode features an excerpt from an interview with Dr. David Amron, recorded during our Lipedema Worldwide Summit in 2016.- Dr. Amron, a Beverly Hills-based plastic surgeon specializing in liposuction for lipedema, shares his expertise.- In this segment, he discusses the Roxbury Institute, regenerative medicine, stem cell therapy, and their applications in treating lipedema.

- Today's episode features an excerpt from an interview with Dr. Aylah Clark, recorded during our Lipedema & Keto Worldwide Summit in 2017.- Dr. Clark, a naturopath based in Connecticut, USA, shares her insights.- In this segment, she details her approach to treating lipedema patients in her practice.

- In today's episode, we feature an excerpt from an interview with Dr. Georgia Ede, recorded during our Lipedema & Keto Worldwide Summit in 2017.- Dr. Ede, a Harvard-trained psychiatrist with a focus on nutrition, shares her expertise.- Visit her excellent website at diagnosisdiet.com.- In this segment, Dr. Ede explores the connection between cholesterol, brain health, and our evolutionary diet.

- Today's episode features a highlight from my presentation at the Heart 2 Heart virtual event held on March 31 through April 2, 2023.- In this segment, I discuss Complete Decongestive Therapy (CDT), the premier approach for the conservative treatment of lipedema and lymphedema.

Today, Gail Straker shares her keto journey and the numerous health improvements she has experienced. As a dedicated teacher, Gail has always embraced learning and sharing her knowledge with others. She has guided over a dozen loved ones to take charge of their health, lose weight, and reduce medications through dietary changes. Gail continues to help others as a Certified Advisor with The Noakes Foundation, The Nutrition Network, and as a coach and mentor for Lipedema Simplified.

Today, I'm sharing an excerpt from our 2016 Lipedema Worldwide Summit interview with Ing Marie Bohmelin from Sweden, a board member of Lymf Sverige. She discusses her discovery of having lipedema and shares her experience with liposuction surgery.

Today, we explore a groundbreaking research paper published in JCI Insight by Ma and colleagues in June 2020, titled “Platelet factor 4 is a biomarker for lymphatic-promoted disorders.” The study, which included contributions from Dr. Stanley Rockson at Stanford University and Dr. Guillermo Oliver at Northwestern, aimed to identify a biomarker for lymphatic dysfunction and improve the diagnosis of lipedema, further confirming that lipedema is a lymphatic disorder.

Today, I'm sharing an excerpt from our 2017 Lipedema & Keto Worldwide Summit interview with Nina Teicholz, an acclaimed investigative journalist. In this clip, Nina discusses what sparked her investigation into dietary fat, culminating in the publication of her groundbreaking book, The Big Fat Surprise.

Today, I'm sharing an excerpt from our 2016 Lipedema Worldwide Summit interview with Carol Lange, who hails from Adelaide, Australia, and lives with lipedema. In this segment, Carol reveals how she identified inflammatory foods through an elimination diet.

Today, I'm sharing an insightful clip from our 2017 Lipedema & Keto Worldwide Summit interview with Dr. Jeffry Gerber, a renowned family physician in Denver. Known as Denver's Diet Doctor, Dr. Gerber delves into his journey of discovering the importance of nutrition and how he seamlessly incorporated it into his medical practice.

- Today I'd like to tell you about a study by Alexandre Amato and Daniel Benitti, surgeons in Brazil.- The title of this open-access review article is *Efficacy of Liposuction in the Treatment of Lipedema: A Meta-Analysis*.- It was published in the peer-reviewed journal *Cureus* in February 2024.

In this episode, Kelly Bell recounts his journey of developing lymphedema throughout his body as a result of a treatment for reflux, which inadvertently introduced a plastic polymer into his lymphatic system. He discusses how he effectively manages his condition with a ketogenic diet, allowing him to reclaim his life. In addition to being a lymphedema patient, Kelly Bell is a staunch advocate for lymphedema patients with LE&RN, serving as Chairperson of the NC LE&RN Chapter. A retired Coast Guard veteran with over 25 years of service, he has found success in utilizing a ketogenic diet to address his lymphatic disorder and is passionate about assisting others in adopting a similar lifestyle.

Today, I'd like to share a segment from an interview with Tilly Smidt, recorded during our Lipedema Worldwide Summit in 2016. Tilly, a woman living with lipedema from the Netherlands, generously shares her journey of discovery: from learning about lipedema to finding a personalized management plan that suited her needs.

Today, I want to share an excerpt from an interview with Dr. Joanna Dudek, featured in our Lipedema & Keto Worldwide Summit in 2017. Dr. Dudek is a psychologist and nutritionist specializing in contextual behavioral therapies, including Acceptance and Commitment Therapy (ACT) and Functional Analytic Psychotherapy (FAP). She conducted research on the psychological aspects of living with lipedema as a PhD student at the University of Social Sciences and Humanities in Warsaw, Poland, where she is now an instructor. Additionally, Joanna serves on the Medical Advisory Board for the Lipedema Project. In this excerpt, Dr. Dudek discusses psychological flexibility and how this practice helps women with lipedema lead meaningful lives despite their chronic illness. She also shares small actions women can take to enhance their self-care and self-compassion.

This episode talks about the inaugural meeting of the National Commission on Lymphatic Diseases, aimed at advancing lymphatic research. Dr. Stanley Rockson co-chairs the commission, emphasizing the importance of lymphatics in bodily function.The commission seeks public input via a Request for Information (RFI) on various aspects of lymphatic diseases until June 28.Link for submission: https://rfi.grants.nih.gov/?s=663a43f2f5e57a5a12021e82(Scroll down to the very bottom of the page to submit your contribution to this effort.)Questions or submissions may also be sent to: NHLBI_NCLDquestion@mail.nih.govHelpful links for information and upcoming events and activities:Lipedema Simplified Calendar: https://lipedema-simplified.org/Blog: https://lipedema-simplified.org/blog/

Today, I want to share an excerpt from an interview with Dr. Georgia Ede, featured in our Lipedema & Keto Worldwide Summit in 2017. Dr. Ede is a Harvard-trained psychiatrist with a special interest in nutrition. She also has a fantastic website, diagnosisdiet.com, that you might want to visit. In this clip, she discusses the impact of dietary carbohydrates on brain health and explains why a ketogenic diet is ideal for brain health.

Today, I want to share an excerpt from an interview with Dr. David Amron, featured in our Lipedema Worldwide Summit in 2016. Dr. Amron is a plastic surgeon based in Beverly Hills, California, specializing in liposuction for lipedema. In this excerpt, he talks about how he developed his unique approach to treating lipedema with liposuction.

Today, I want to share details about a study conducted by researchers from Tennessee, Texas, and California. The lead author of this study is Adri Chakraborty. Titled Indications of Peripheral Pain, Dermal Hypersensitivity, and Neurogenic Inflammation in Patients with Lipedema, and published in the peer-reviewed International Journal of Molecular Sciences in September 2022.

In this episode, we are joined by Gail Straker, who shares her journey of discovering her diagnosis of lipedema and collaborating with Catherine at Lipedema Simplified. As an educator, Gail's innate curiosity and passion for learning have propelled her to not only educate herself but also empower others. She has imparted her knowledge to over a dozen individuals, guiding them to reclaim their health, shed weight, and reduce reliance on medications through dietary modifications. Currently serving as a Certified Advisor with The Noakes Foundation and The Nutrition Network, Gail also extends her support as a coach and mentor with Lipedema Simplified, embodying her commitment to helping others achieve wellness. Join us as we delve into Gail's inspiring journey and her impactful contributions to the lipedema community.

In this episode, we feature a snippet from an interview with Dr. Matthew Carmody, recorded during our 2016 Lipedema Worldwide Summit. Dr. Carmody, an Assistant Professor of Medicine at Harvard Medical School and a Diplomate of the American Board of Obesity Medicine, recently shifted his focus to specialize in lipedema and obesity medicine, after retiring from his role as an Internal Medicine practitioner. In this segment, Dr. Carmody discusses the fundamental principles that underpin effective collaboration between patients and doctors. Join us as we explore his insights into fostering productive partnerships in healthcare.

In today's episode, we highlight a study conducted by Spanish clinician and researcher, Dr. Isabel Forner-Cordero, along with her colleagues. The paper, titled "Prevalence of Clinical Manifestations and Orthopedic Alterations in Patients with Lipedema: A Prospective Cohort Study," was published in Lymphology in January 2022. Join us as we delve into their findings and explore the implications for understanding and treating lipedema.

In today's episode, we present an excerpt from an interview with Dave Feldman, recorded during our 2017 Lipedema & Keto Worldwide Summit. Dave, a software engineer, draws fascinating parallels between the lipid system and software networks. In this segment, he discusses the crucial role that women's ability to store fat has played in the survival of our species. Tune in to explore Dave's unique insights and perspectives.

Jennifer Lee, who resides in Perth, Australia, discusses her personal journey to understand why her legs looked different from others, with the assistance of her lymphatic therapist. She also shares effective strategies she has discovered to manage her symptoms. Join us to hear Jennifer's inspiring story and practical advice.

In this episode, we feature an insightful excerpt from an interview with Dr. Georgia Ede, recorded during our Lipedema & Keto Worldwide Summit in 2017. Dr. Ede, a Harvard-trained psychiatrist with a keen interest in nutrition, shares her expertise on fiber and dietary choices. She also discusses the hormonal changes during pregnancy and how they led her to believe that a human Chorionic Gonadotropin (hCG) diet could be effective for managing lipedema. Don't forget to visit her informative website, diagnosisdiet.com, for more valuable resources.

In this episode, we dive into a fascinating study conducted by Brazilian surgeon and researcher, Dr. Alexandre Amato. His paper, titled "The Association Between Lipedema and Attention-Deficit/Hyperactivity Disorder," was published in Cureus in February 2023. Join us as we explore the intriguing connection between these two conditions and what it could mean for future research and treatment.

- A group of us from our Lipedema TRIBE do Miranda exercises five days a week.- If you're a member of the TRIBE, know that you can join in at any time and do about 25 minutes of stretching.- It's manageable and feels great, making it a key part of my self-care routine.- I also love lemon water.- From what I've read, it's very good for the lymphatic system.- It's something that I feel is healthy for me.

Today, I have an excerpt from an interview with Dr. Matthew Carmody from our Lipedema Worldwide Summit held in 2016.Dr. Carmody is an Assistant Professor of Medicine at Harvard Medical School and a Diplomate of the American Board of Obesity Medicine. He recently retired from his practice as an Internal Medicine practitioner to focus on lipedema and obesity medicine.In this excerpt, Dr. Carmody discusses the key components of a good patient-doctor relationship that are most effective in generating solutions for chronic conditions like lipedema.

This episode talks about a study conducted by researchers from Norway. Their research, titled "Younger Women with Lipedema: Their Interactions with Healthcare Providers, and the Significance of Social Support and Belonging," was published in the January 2023 issue of the International Journal of Environmental Research and Public Health.

- Today, I'm sharing an excerpt from an interview with Dr. Stutz from our Lipedema Worldwide Summit held in 2016.- Dr. Stutz is a leading lipedema surgeon in Germany and a pioneer in the water-jet assisted liposuction (WAL) treatment for lipedema.- In this excerpt, Dr. Stutz discusses what patients with lipedema should expect from liposuction and explains why he treats girls at puberty as well as larger women with additional health issues.- He emphasizes the importance of listening to his patients and providing them with hope.

Today, I have an excerpt from an interview with Dr. Paula Stewart from our Lipedema & Keto Worldwide Summit held in 2017.Dr. Stewart is board-certified in Physical Medicine & Rehabilitation and specializes in general physical rehabilitation, neurologic rehabilitation, and comprehensive rehabilitation care of patients with cancer and lymphedema.In this excerpt, Dr. Stewart shares her belief that prehistoric women with lipedema were the Mothers of the Human Race. She explains how pregnancy hormones led her to consider that a human Chorionic Gonadotropin (hCG) diet might be effective for treating lipedema.

Today, I have an excerpt from an interview with Kate Freeman from our Lipedema Worldwide Summit held in 2016.Kate Freeman is the Founder of Heart of Releasing, Inc. and has been facilitating Releasing courses, retreats, and coaching sessions for over 35 years.In this excerpt, Kate discusses the “alchemy” of Releasing, sharing how letting go of your emotions can transform your life.

I received numerous communications from individuals eager to help further our knowledge about lipedema, and here are some studies with potential and possibilities of participation in lipedema research.Your participation could be instrumental in advancing our understanding of lipedema.

In this episode, we reflect on a profound saying from Charles Swindoll that guides us in navigating unexpected obstacles. Regardless of the circumstances, we hold the power to determine our response and reaction. Join us as we explore how fostering an attitude of joy, self-care, self-love, and compassion can empower us to face challenges with resilience and grace. Above all, may this episode inspire you to embrace a profound love for yourself, enriching your journey toward personal growth and fulfillment.

In this episode, we delve into the importance of a personalized and holistic approach to combating lipedema with Nobuhle Williams. Unlike a one-size-fits-all solution, combining various treatment options has been shown to produce the most effective results. We'll explore the unique benefits of different treatments and provide guidance on how to mix and match them to suit your individual needs.

This episode talks about the highlights of a conference that Dr. Leslyn Keith attended on March 3-7, 2024.The original purpose of the **Gordon Research Conference (**GRC) was to bring together scientists working at the frontier of research in a particular area, such as biochemistry, physics, etc. in order to discuss in depth the most recent advances in the field and to stimulate new directions for research.Explore diverse breakthroughs in lymphatic research, including insights into brain and bone lymphatics, organ systems, and genetic factors underlying primary lymphedema and lipedema, showcased at this conference.

- Today, I have an excerpt from an interview with Dr. Georgia Ede from our Lipedema & Keto Worldwide Summit held in 2017.- Dr. Ede is a Harvard-trained psychiatrist with a special interest and expertise in nutrition.- She has a wonderful website, diagnosisdiet.com, that you may want to check out.- In this excerpt, Dr. Ede explains what a keto diet is and why it benefits the brain.- She also discusses the importance of individualizing a diet to find what works best for you.

- Today, I have an excerpt from an interview with Dr. Paula Stewart from our Lipedema & Keto Worldwide Summit held in 2017.- Dr. Stewart is board-certified in Physical Medicine & Rehabilitation, specializing in general physical rehabilitation, neurologic rehabilitation, and comprehensive rehabilitation care for patients with cancer and lymphedema.- In this excerpt, Dr. Stewart shares how she first learned about and began treating lipedema over 20 years ago.