Podcasts about carer gateway

Chances are, you’ve supported someone going through a tough time. And while the meaning sustains the sacrifice, today we want to support you ….. supporting them. A bit of support inception, if you will. To guide us through this incredibly complex and meaningful topic is our resident psychologist, Dr Emily Musgrove. Navigating relationships requires awareness. Showing up as a partner, friend, parent, or sibling while holding space for pain – without being overwhelmed – is a skill that takes practice. Reminding us that no one hates their struggle more than the person suffering, Dr Em delves into some practical strategies of support, such as walking the line between respect and care, as well as always understanding the difference between effort and capacity. To all of the supporters and carers listening, we see you. We love you. And we hope you felt held, too. To watch this full episode on YouTube, follow this link - https://bit.ly/3XILzEe To pre-order Dr. Em’s book Unstuck, click here - https://bit.ly/4bhmCp2

It might surprise you to know there are nearly four hundred thousand young people (under 25 years) in Australia who provide unpaid care and support to a loved one. In this episode host Nadia Rossi talks with Isabella Hassall, Young Carer Coordinator at Carer Gateway for the Benevolent Society. Isabella shares how carers are often hidden figures in our community. She also discusses the challenges of being a young carer, how the adults in their life can support them and what opportunities they can access.

Don't miss this incredible episode – a deeply moving conversation with primary school teacher Lynne Harris, mother and full-time carer of her son with Severe ME/CFS and Emerge Australia CEO, Anne Wilson. Emerge Australia is proud to be collaborating with Merri Health who lead Carer Gateway in Victoria – a free support service funded by […]

Kate and Mandy chat with Amanda, Pea mum of two daughters, a carer for her dad, a teacher of one day and a wonderful carer. Amanda introduces us to her family and youngest daughter Bella who has autism and an intellectual disability. Bella is also our own Molly's BFF. Amanda shares with us about the early years with Bella, her mainstream beginning in school and her move to specialist schooling after the school encouraged the move. Bella has thrived in these schools and is in a core friendship group of 4 friends who have done some amazing and fun things together.Amanda is a woman who loves to study, and was doing her thesis during Melbourne's COVID-19 lockdown in 2020 with her family at home. Experiencing overwhelm, Amanda called Carer Gateway which is Australian federal and state government-funded program that provides emotional and practical services and support for carers. Amanda received practical help from Carer Gateway, and so did her eldest daughter who was also studying her VCE. Amanda now works for them as the Victorian Partnerships Lead and her job is to talk to organisations to build partnerships with Carer Gateway. Amanda absolutely loves this work and sees it as a great privilege to use her lived experience as well as her skills to improve the lives of carers.Thank you Amanda for chatting with us.Plus: Listen to our Spotify playlist –Too Peas: Songs Our Guest Peas LoveJoin our Facebook HangoutFind us on YouTubeBuy our book The Invisible Life Of Us!Melbourne forecast for Friday May 10 - Showers easing, 18 degrees Hosted on Acast. See acast.com/privacy for more information.

Η Carer Gateway, είναι βραχίονας του ομοσπονδιακού υπουργείου Κοινωνικών Υπηρεσιών με κύριο σκοπό να βοηθά φροντιστές και φροντίστριες.

Hoy hablamos con Marisa Alcaide, que cuida de su hijo con autismo y con Johanna Mestanza, quien es parte de un programa gratuito del gobierno, llamado Carer Gateway, que ofrece apoyo a cuidadores no remunerados que cuidan de familiares o amigos, para que puedan descansar. También hablamos del Comité para el Desarrollo Económico de Australia que indica que el país debe hacer un mayor uso de los inmigrantes cualificados, y te ofrecemos la actualidad deportiva de la jornada.

Send us a Text Message.Sam, a mum, Support Coordinator and Founder of The Growing Space,  talks about her journey with two neurodiverse children, who have now grown into confident adults.  Through her experience as a parent and Support Coordinator who runs a successful business helping other parents, she shares the challenges and highlights of her joruney as well as important tips for parents navigating the world of neurodiversity. Sam is an inspiration for many of us and a great advocate for people who are neurodiverse.https://www.thegrowingspace.com.au/who-are-we/https://www.thegrowingspace.com.au/ danabaltutis.com, mytherapyhouse.com.au, https://mytherapyhouse.com.au/your-childs-therapy-journey/ https://www.danabaltutis.com/services

Carer Gateway هو برنامج تابع للحكومة الأسترالية يقدم خدمات ودعمًا مجانيًا لمقدمي الرعاية. إذا كنت تعتني بأحد أفراد العائلة أو صديق يعاني من إعاقة، أو حالة طبية، أو مرض عقلي، أو كبير في السن، فبإمكانك الحصول على المساعدة بأشكال مختلفة. وتعمل الحكومة الأسترالية مع مجموعة من المنظمات الصحية ومقدمي الرعاية في جميع أنحاء أستراليا لتقديم الخدمات لمقدمي الرعاية بغض النظر عن المكان الذي يعيشون فيه. الخدمات تشمل مجموعات دعم شخصية وعبر الإنترنت، وخدمات النقل، والاستشارة وجهاً لوجه وعبر الهاتف، بالإضافة إلى دورات لصقل المهارات لدعم رفاه مقدم الرعاية وفهم المسؤوليات القانونية المتعلقة بالرعاية. يسعى القائمون على البرنامج إلى تعريف الناطقين بالعربية بالخدمات المقدمة ومن هنا تحدثنا مع منيرة، التي وصلت إلى أستراليا قادمة من مصر في عام 2011. تعتني منيرة بصديقتها فريال، البالغة من العمر 85 عامًا. فريال والتي تعيش بمفردها، تتعافى من سكتة دماغية وتعاني من فقدان الذاكرة. لماذا تصف منيرة Carer Gateway بأنها "صديقتها المفضلة"؟ ما هي أبرز التحديات التي تواجهها أثناء تقديم الرعاية؟ استمعوا إلى تجربة منيرة في الملف الصوتي المرفق بالصورة أعلاه.

Carers are people who provide unpaid care and support to someone who needs help with their day-to-day living, who has a disability, mental health condition, or any health condition requiring care and assistance. Carer Gateway is an Australian Government program providing support to carers. The program's digital photographic exhibition 'Real Carers Real Stories - In Their Own Words' features ten carers. Aakriti Chhetri is one of the unpaid carers. She provides support to her friends Himanshu and Neha who live with muscular dystrophy. Chhetri spoke to SBS Nepali about her experience of working as a carer in a new country, the rewards, and the learnings from her caregiving journey. - तपाईँ अस्ट्रेलियामा बस्नु हुन्छ भने तपाईँले 'केयरर' भन्ने शब्द सुन्नु भएको नै होला। केयरर अर्थात् स्याहारकर्ता भनेर ती व्यक्तिहरूलाई चिनिन्छ जसले अशक्तता, मानसिक समस्या वा कुनै किसिमको स्वास्थ्य समस्या भएका व्यक्तिहरूको स्याहार गर्दछन्। यस्तै केयररहरूको अनुभव सँगालेर अस्ट्रेलिया सरकार अन्तर्गत रहेको 'केयरर गेटवे'ले 'रियल केयरर्स रियल स्टोरिज - इन देयर ओन वर्ड्स' नामक एक डिजिटल फोटो प्रदर्शनी गरेको छ। त्यसमा एडिलेडकी आकृति क्षेत्रीलाई पनि देख्न सकिन्छ। छ वर्ष अघि विद्यार्थीको रूपमा अस्ट्रेलिया आएकी क्षेत्री, हाल एडिलेडको एक एज्ड केयरमा कम्युनिटी प्रोजेक्ट अफिसरको रूपमा कार्यरत छिन्। उनी सिड्नीमा रहेका आफ्ना दुई जना साथीहरूको केयरर हुन्। केयरर हुँदाको आफ्नो अनुभव र यसरी कसैलाई स्याहार गरिरहेका मानिसहरूका लागि केही सल्लाह सुझाव सहित क्षेत्रीले एसबीएस नेपालीसँग गरेको कुराकानी सुन्नुहोस्।

A single mother of six, Robina Yasmin overcame the challenges of being a carer to her 33-year-old disabled son with the help of a free government program called Carer Gateway. Ms Robina is now an advocate of the service. - چھ بچوں کی تنہا والدہ روبینہ یاسمین کئی سالوں سے اپنے بیٹے اسمعیل کو اس کے پیروں پر کھڑا کرنے کی جدوجہد میں مصروف ہیں۔ایک دن جب مس روبینہ نے کیئرر گیٹ وے کا پوسٹر دیکھا جس میں بتایا گیا تھا کہ کس طرح کی مدد ، رہنمائی اور مشاورت موجود ہے تو انہوں نے سرکاری خدمات کے کیئرر گیٹ وے کو کال کی اور اس ایک فون کال نے ان کی زندگی میں آسانی کا دروازہ کھول دیا۔

您是一个无偿照顾者吗？如果您是，或许可以尝试申请澳大利亚政府联邦计划Carer Gateway的免费福利。 您是符合条件的人吗？六方面的福利分别是哪些，经济支持具体多少？十二个月服务结束后照顾者又何去何从？

澳大利亚有超过265万名无薪护理人员在默默肩负着照顾者的任务，华人Leanne Wong为了照顾双亲而不得不舍弃了金融业的工作（点击收听完整故事）。

Across Australia, there are 2.65 million people who dedicate their lives to caring for family members or friends with disabilities, chronic illnesses, or age-related conditions. These unpaid carers, often unsung heroes, face financial hardship due to limited income opportunities, paired with the significant cost of care. Whilst caring can greatly expand someone's skill set, carers also shoulder immense emotional pressures as they navigate the demanding and complex landscape of care provision for their loved ones.In this episode of Work with Purpose, our host Caroline Walsh, CEO of IPAA ACT, has a meaningful conversation about carers and how workplaces can support them with our guests, some of whom also share their own personal experience as carers. Joining us are Robyn Shannon, acting deputy secretary of the Department of Social Services, Lisa Kelly, CEO of Carers ACT, and Alex Allars, executive branch manager, Whole of Government Industrial Relations & Public Sector Employment, Treasury and Economic Development Directorate, ACT Government. This episode examines the public support mechanisms for carers at both the federal and ACT levels, and explores how these systems may need to evolve in the future.Discussed in this episode:The Impact of caring responsibilities and the differing needs of carer cohortsGovernment initiatives like the Carer Gateway, payments, and the planned National Carers StrategyThe ACT government efforts to support carers in workplaces and the effects on productivity and engagementAdvocacy and engagement with carers in policymakingVisions for an ideal carer-supportive Australia.Show notes:Disability and Carers | Department of Social ServicesAustralia's 2.65 million carers urged to weigh up their vote in light of parties' responses to commitment to Carers Australia's election survey | Carers AustraliaWho is a Carer? | Carers AustraliaTerms of Reference | Inquiry into the Recognition of Unpaid Carers | Parliament of AustraliaACT Carers Strategy | ACT Community ServicesCarer Gateway | Australian GovernmentGetting a payment if you're a carer - Caring for someone | Services AustraliaCarers can contact the Carer Gateway by calling 1800 422 737 or visiting the Carer Gateway website to see what services and supports are available to help in their caring role.For anyone who would like to know more about payment assistance including eligibility and how to apply they can contact Services Australia by calling 132 717 or on the Services Australia website. Hosted on Acast. See acast.com/privacy for more information.

Chúng ta thường nghe nói đến chương trình Carer Gateway trên truyền thanh, truyền hình và trên báo chí, như vậy dịch vụ nầy như thế nào?. Bà Karen Barry là nhân viên phục vụ trong chương trình Carer Gateway tại Nam Úc, có dành cho Phan Bách một cuộc phỏng vấn, để hiểu rõ hơn về chương trình nầy. Sau đó cô Nguyễn Thị Minh Tâm, nhân viên về Home Care thuộc tổ chức Cass Care, so sánh Carer Gateway với Respite Care.

Mandy and Kate chat with Helen Bourke-Taylor - a paediatric occupational therapist and Associate Professor at Monash University's Department of Occupational Therapy. Helen has 32 years of experience working with children with disabilities and their families in Australia and in the USA. Helen developed a focus on mothers while working with their children and completed a PhD in 2010 that investigated the health and experiences of mothers. Since then, Helen has developed a program called Healthy Mothers Healthy Families, which is the longest-running, most effective program for mothers of children with disabilities in the world. The award-winning program offers free workshops, a free self-paced website and training for paediatric OTs to better support Pea mums. Mandy has completed the course and rated it “magic”. Helen is passionate about supporting mothers and doesn't intend to stop advocating for them anytime soon. She sees her role as metaphorically watering and shining sunshine onto Peas, and ensuring that they feel seen and validated in their role. Helen, Mandy and Kate have a long, nourishing chat about the benefits and research findings of the Healthy Mothers, Healthy Families program and the vital importance of Pea mums finding time to look after their own physical and mental health and wellbeing, to ensure a healthy and happy life for their families. Thank you so much Helen for caring for us! Peas, sign up for the next program on the Kindred website. It's free and designed just for you, and builds on the wisdom of over 1500 Peas that have contributed to the development and evaluation of the program over several years. Send us a speakpipe and let us know how you went. PlusView the Healthy Mothers Healthy Families website If you would like to learn more about support for mother-carers, visit The Carer Gateway for free counselling programs and support.For tools and resources to help with the way you feel, try This Way Up Mandy saw the movie Champions and loved it. Melbourne forecast for Friday 28 April - Showers developing, 21 degrees Join our Facebook HangoutFind us on YouTubeHelp spread the love for Too Peas by rating and reviewing us!Thank you for supporting Too Peas In A Podcast! We love to hear from you, please contact us here: Website: www.toopeasinapodcast.com.auEmail: toopeaspodcast@gmail.com Hosted on Acast. See acast.com/privacy for more information.

因新冠疫情而滞缓的Carer Gateway计划门槛极低，受益群体几乎涵盖所有在澳群体。对照看看，您是否有条件申请。欢迎点击收听。

Today's episode of the Care Mosaic focuses on the importance of advocating for unpaid carers. We will be hearing from Wendy, a carer of both her grandson and her two elderly parents – and also the coordinator of Sunraysia Carers Hub in Mildura! Allie and Pete, two carers that benefit from the Sunraysia Carers Hub, also join us to discuss the important of connecting with other carers. You can contact Carer Gateway on www.carergateway.gov.au or you can phone 1800 422 737 Monday to Friday between 8am and 5pm

Welcome to the first edition of the Care Mosaic, a podcast that explores the challenges that unpaid carers face on a daily basis. Today we will be hearing from Pru and Kylie who, despite being optimistic about the role they play in the lives of the people they care for, are not the biggest fans of the term carer. Make yourself a cuppa and sit back as we hear how these women came to be carers, what caring means for them and the assumptions we might need to change to make the term carer one that better matches their experiences. You can contact Carer Gateway on www.carergateway.gov.au or you can phone 1800 422 737 Monday to Friday between 8am and 5pm

This episode of the Care Mosaic explores the assumption that when a loved one goes into formal care, such as a nursing home or supported living accommodation, the caring role stops. However, this is often not the case. Today we are speaking to Peter and Julie, two carers who know firsthand that a caring role does not simply stop because their care recipient has gone into full time care – their role only changes. You can contact Carer Gateway on www.carergateway.gov.au or you can phone 1800 422 737 Monday to Friday between 8am and 5pm

Did you know that 1 in 10 young people are young carers? In today's edition of the Care Mosaic we will be talking to Naomi, a young carer based in Melbourne's north. The juggling act of care, study, love and hobbies has been a feature of Naomi's world since she was seven and today we are going to hear her story on how she cares for her mom, grandma and two younger siblings. You can contact Carer Gateway on www.carergateway.gov.au or you can phone 1800 422 737 Monday to Friday between 8am and 5pm

Today's episode of the Care Mosaic focuses on Fatima, a young carer living in Geelong. As an Afghan refugee who grew up in Pakistan, in the border city of Quetta, the word challenge has a different meaning for her. Fatima is a carer for her grandfather and her younger brother as the rest of her family have sadly not been granted visas to join her in here Australia. This is Fatima's story. You can contact Carer Gateway on www.carergateway.gov.au or you can phone 1800 422 737 Monday to Friday between 8am and 5pm

The burden of mental illness in Australia is incredibly high and at the heart of the response are unpaid carers, providing daily support to people living with mental illness. This type of caring can have all sorts of different impacts and can often lead to poor mental health, physical health and severe financial stress for the carers themselves. In today's episode of the Care Mosaic, you are going to hear about how this plays out in daily life for Wendy and Nicole, both of whom care for someone with a mental illness. You can contact Carer Gateway on www.carergateway.gov.au or you can phone 1800 422 737 Monday to Friday between 8am and 5pm

Welcome to the seventh and final episode of the Care Mosaic. Throughout this series, carers have spoken about the importance of love in sustaining themselves as carers and this is a message that Rod, our guest today, is keen to share. This is a story of love, challenges and finding joy in the small things. You can contact Carer Gateway on www.carergateway.gov.au or you can phone 1800 422 737 Monday to Friday between 8am and 5pm

The podcast, titled The Care Mosaic, explores the challenges unpaid carers face on a daily basis. Evan Wallace, podcast host, says of the series “Carers come from all different walks of life and the nature of care they provide looks incredibly different. Some individuals may have cared for a loved one for most of their life, whereas for others it could be for a short and potentially challenging period.” Each episode looks at a particular type of caring relationship, including young carers, carers supporting their ageing parents and carers who are partners - focusing on the nature of the caring relationship and how the care relationship features within other aspects of their life. The stories also touch on the support carers have received, including Carer Gateway. Carer Gateway is a free service that supports anyone who is an unpaid carer looking after someone with a disability, mental illness, a medical condition or who is frail due to age. The support includes counselling, coaching, group support, respite and skills courses. Contact Carer Gateway on https://www.carergateway.gov.au/ or call 1800 422 737 Watch this space for full length interviews with our carers.

好多照顧者可能聽過暫緩服務（respite care support），但大家又是否知道政府的「Carer Gateway(照顧者一站通)」服務？  

照顾者门户（Carer Gateway）是联邦政府资助的免费照顾者支持服务，申请者没有签证、收入、年龄限制。（点击上图收听音频）

FND awareness week 2022 During Christmas New Years period it became apparent that all was not going to be well for Rod. He got Covid and he talks about his experience with covid. Thankyou for sharing Rod your experience. The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.What to do if you have a positive for covid:https://vm.tiktok.com/ZSeV7dJuH/Carers advice : looking after someone with covid https://www.carersaustralia.com.au/coronavirus-information/covid-19-advice-for-carers/Managing covid and government information australia:https://www.health.gov.au/health-topics/aged-care/advice-on-aged-care-during-covid-19/managing-home-careMy aged care : caring for the elderly with covidhttps://www.myagedcare.gov.au/caring-someoneThe FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.To listen to Rods My FND Reality : his Caregiving story click belowhttps://thefndpodcast.simplecast.com/episodes/my-fnd-reality-caregiving-talking-to-rodneyCarer Gateway is an excellent resource provided by the federal government  to help support caregivers by giving resources, support , education, forums and more. We recently had an interview with Catholic care who runs Carer Gateway to learn more about them you can listen to their interview below :https://thefndpodcast.simplecast.com/episodes/supporting-caregivers-carer-gatewayFor more information on Carer Gateway https://www.carergateway.gov.au/their phone number is 1800 422 737also join their Facebook page to keep updated and their support groups.For the FND Australian support services Facebook group to talk and share support of other caregivers looking after FNDers / support advocates click on the link belowhttps://www.facebook.com/groups/588224248292396For more information about NDIS checkout Carers Australia @ www.carers australia.com.auhttps://www.carersaustralia.com.au/ndis-carers/what-is-the-ndis/https://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts check them out!What has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :)https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1https://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there. https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!https://www.neurokid.co.uk/A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fnd Information on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.Click below to hear more about FND Australia Support services and who Dr. Katherine Gill is https://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups' across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is:https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQOther podcasts/ blogs / vlogs to follow:itsmeitsmeitsfndhttps://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDer https://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacksfollow on Instagram @ Meg.jacks_TicTok: @megjacksInstagram follow Emma's journey :@emmas_fnd_funThe Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FNDPeople Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check outDylan AlcottAthelete , paraolympics , podcaster , raising awareness and voices of the disabledInstagram :@ listenable_podcast @dylanalcottWebsite: www.abilityfest.com.auElle StellaBusiness Success Coach , Paraolympian & intuitive healerInstagram: @iamellesteeleWebsite: www.iamellesteele.comCarly FindlayActivist, writer, Blogger with a condition called ichtchyosis.Instagram: @carlyfindlayWebsite: www.carlyfindlay.com.auSophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitudeInstagram: @sophjbutlerYouTube: https://youtu.be/wgfAYDlXXvMMeg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FNDInstagram: @Meg.Jacks_TicTok: MegjacksJulian Gavino(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representationInstagram:  @thedisabledhippie Nina Tame aka the Lunch LadyShe's a single mum who's disabled and a disability advocate. Parenting with disabilityWebsite: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/Chloè Hadenshe is an Australian actor YouTuber singer dancer and she's autistic. She beings awareness about Autism and talks openly about life with Autism.Instagram: @princesssapien Website: https://www.chloehayden.com.au/Youtube: Chloè HadenStyle like UFounded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.Website: https://stylelikeu.com/about-us/Lucy Dawsonwho unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.Instagram : @luuudawWebsite: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/Cripple MediaCripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren't the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It's really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awarenessInstagram: @cripple mediaWebsite: https://cripplemedia.com/about/ Aaron Rose Philip For more information check out this wonderful article herehttps://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893Instagram:aaron_phillip transgendered disabled fabulous Model check him outNicole Parishshe is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the Forest

In this episode Rod explains that he's now participating in Respite care as part of his services however it can be a good part in care for those caregiving. We also look into social life, support whilst caregiving as well as prevention of burn out. things to think about:Respite: part of self care and looking after yourself as a caregiver may sometimes and can mean taking a break completely and may very well be vice versa so that it prevents burnout .https://www.carergateway.gov.au/respite?utm_source=google&utm_medium=paid-search&utm_campaign=10626744453&utm_adgroup=102994882777&utm_term=%2Brespite%20%2Bcare%20%2Bservices&gclid=Cj0KCQiA4b2MBhD2ARIsAIrcB-QCVy9Pxd74Y5OVV7pl53J_pQT7Y79Qb50M1IzDyRjwh0gi2FTkJLUaAvCXEALw_wcB What uplifts you? What helps clear Rods mind and helps him get set for the day is this motivational speech/talk from Matthew McConoughey academy award winning actor, writer and philanthropist hi speeches and talks uplift and Inspire.https://youtu.be/UuuhZ9ViXKM-The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.Disability advocacy is acting, speaking or writing to promote, protect and defend the human rights of people with disability. The Australian Government, and some state and territory governments, fund independent advocacy to help people with disability who face complex challenges or are unable to advocate for themselves, and do not have family, friends or peers who can support them as informal advocates, to access advocacy support.To listen to Rods My FND Reality : his Caregiving story click belowhttps://thefndpodcast.simplecast.com/episodes/my-fnd-reality-caregiving-talking-to-rodneyCarer Gateway is an excellent resource provided by the federal government  to help support caregivers by giving resources, support , education, forums and more. We recently had an interview with Catholic care who runs Carer Gateway to learn more about them you can listen to their interview below :https://thefndpodcast.simplecast.com/episodes/supporting-caregivers-carer-gatewayFor more information on Carer Gateway https://www.carergateway.gov.au/their phone number is 1800 422 737also join their Facebook page to keep updated and their support groups.For the FND Australian support services Facebook group to talk and share support of other caregivers looking after FNDers / support advocates click on the link belowhttps://www.facebook.com/groups/588224248292396For more information about NDIS checkout Carers Australia @ www.carers australia.com.auhttps://www.carersaustralia.com.au/ndis-carers/what-is-the-ndis/https://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts check them out!What has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :)https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1https://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there. https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!https://www.neurokid.co.uk/A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fnd Information on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.Click below to hear more about FND Australia Support services and who Dr. Katherine Gill is https://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups' across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is:https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQOther podcasts/ blogs / vlogs to follow:itsmeitsmeitsfndhttps://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDer https://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacksfollow on Instagram @ Meg.jacks_TicTok: @megjacksInstagram follow Emma's journey :@emmas_fnd_funThe Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FNDPeople Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check outDylan AlcottAthelete , paraolympics , podcaster , raising awareness and voices of the disabledInstagram :@ listenable_podcast @dylanalcottWebsite: www.abilityfest.com.auElle StellaBusiness Success Coach , Paraolympian & intuitive healerInstagram: @iamellesteeleWebsite: www.iamellesteele.comCarly FindlayActivist, writer, Blogger with a condition called ichtchyosis.Instagram: @carlyfindlayWebsite: www.carlyfindlay.com.auSophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitudeInstagram: @sophjbutlerYouTube: https://youtu.be/wgfAYDlXXvMMeg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FNDInstagram: @Meg.Jacks_TicTok: MegjacksJulian Gavino(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representationInstagram:  @thedisabledhippie Nina Tame aka the Lunch LadyShe's a single mum who's disabled and a disability advocate. Parenting with disabilityWebsite: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/Chloè Hadenshe is an Australian actor YouTuber singer dancer and she's autistic. She beings awareness about Autism and talks openly about life with Autism.Instagram: @princesssapien Website: https://www.chloehayden.com.au/Youtube: Chloè HadenStyle like UFounded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.Website: https://stylelikeu.com/about-us/Lucy Dawsonwho unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.Instagram : @luuudawWebsite: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/Cripple MediaCripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren't the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It's really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awarenessInstagram: @cripple mediaWebsite: https://cripplemedia.com/about/ Aaron Rose Philip For more information check out this wonderful article herehttps://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893Instagram:aaron_phillip transgendered disabled fabulous Model check him outNicole Parishshe is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the Forest

On this episode we talk about National Carers week that has just passed, what it is like to be a caregiver and what uplifts Rod to help him throughout the day. Happy belated national Carers week. Carers week happens annually every year as they have written "National Carers Week is an opportunity to recognise, celebrate, and raise awareness among all Australians about the diversity of Australia's 2.65 million carers and their caring roles. " their website is still up and running and literally it is a wealth of information and resources available to the caregivers. Strongly encourage to go every year for connection education and celebration of the caregivers.  https://carersweek.com.au/about/?gclid=EAIaIQobChMI8bii2JPQ8wIVpDdyCh05mAHCEAAYASAAEgJD4_D_BwEWhat uplifts you? What helps clear Rods mind and helps him get set for the day is this motivational speech/talk from Matthew McConoughey academy award winning actor, writer and philanthropist hi speeches and talks uplift and Inspire.https://youtu.be/UuuhZ9ViXKM-The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.Disability advocacy is acting, speaking or writing to promote, protect and defend the human rights of people with disability. The Australian Government, and some state and territory governments, fund independent advocacy to help people with disability who face complex challenges or are unable to advocate for themselves, and do not have family, friends or peers who can support them as informal advocates, to access advocacy support.To listen to Rods My FND Reality : his Caregiving story click belowhttps://thefndpodcast.simplecast.com/episodes/my-fnd-reality-caregiving-talking-to-rodneyCarer Gateway is an excellent resource provided by the federal government  to help support caregivers by giving resources, support , education, forums and more. We recently had an interview with Catholic care who runs Carer Gateway to learn more about them you can listen to their interview below :https://thefndpodcast.simplecast.com/episodes/supporting-caregivers-carer-gatewayFor more information on Carer Gateway https://www.carergateway.gov.au/their phone number is 1800 422 737also join their Facebook page to keep updated and their support groups.For the FND Australian support services Facebook group to talk and share support of other caregivers looking after FNDers / support advocates click on the link belowhttps://www.facebook.com/groups/588224248292396For more information about NDIS checkout Carers Australia @ www.carers australia.com.auhttps://www.carersaustralia.com.au/ndis-carers/what-is-the-ndis/https://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts check them out!What has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :)https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1https://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there. https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!https://www.neurokid.co.uk/A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fnd Information on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.Click below to hear more about FND Australia Support services and who Dr. Katherine Gill is https://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups' across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is:https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQOther podcasts/ blogs / vlogs to follow:itsmeitsmeitsfndhttps://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDer https://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacksfollow on Instagram @ Meg.jacks_TicTok: @megjacksInstagram follow Emma's journey :@emmas_fnd_funThe Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FNDPeople Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check outDylan AlcottAthelete , paraolympics , podcaster , raising awareness and voices of the disabledInstagram :@ listenable_podcast @dylanalcottWebsite: www.abilityfest.com.auElle StellaBusiness Success Coach , Paraolympian & intuitive healerInstagram: @iamellesteeleWebsite: www.iamellesteele.comCarly FindlayActivist, writer, Blogger with a condition called ichtchyosis.Instagram: @carlyfindlayWebsite: www.carlyfindlay.com.auSophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitudeInstagram: @sophjbutlerYouTube: https://youtu.be/wgfAYDlXXvMMeg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FNDInstagram: @Meg.Jacks_TicTok: MegjacksJulian Gavino(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representationInstagram:  @thedisabledhippie Nina Tame aka the Lunch LadyShe's a single mum who's disabled and a disability advocate. Parenting with disabilityWebsite: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/Chloè Hadenshe is an Australian actor YouTuber singer dancer and she's autistic. She beings awareness about Autism and talks openly about life with Autism.Instagram: @princesssapien Website: https://www.chloehayden.com.au/Youtube: Chloè HadenStyle like UFounded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.Website: https://stylelikeu.com/about-us/Lucy Dawsonwho unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.Instagram : @luuudawWebsite: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/Cripple MediaCripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren't the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It's really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awarenessInstagram: @cripple mediaWebsite: https://cripplemedia.com/about/ 

On this episode Rod talks about the impacts covid has made with the appointments with his mum and procedures. Also taking the steps to reach out and get the help that he needs as his role as a caregiver transitions. The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.Disability advocacy is acting, speaking or writing to promote, protect and defend the human rights of people with disability. The Australian Government, and some state and territory governments, fund independent advocacy to help people with disability who face complex challenges or are unable to advocate for themselves, and do not have family, friends or peers who can support them as informal advocates, to access advocacy support.To listen to Rods My FND Reality : his Caregiving story click belowhttps://thefndpodcast.simplecast.com/episodes/my-fnd-reality-caregiving-talking-to-rodneyCarer Gateway is an excellent resource provided by the federal government  to help support caregivers by giving resources, support , education, forums and more. We recently had an interview with Catholic care who runs Carer Gateway to learn more about them you can listen to their interview below :https://thefndpodcast.simplecast.com/episodes/supporting-caregivers-carer-gatewayFor more information on Carer Gateway https://www.carergateway.gov.au/their phone number is 1800 422 737also join their Facebook page to keep updated and their support groups.For the FND Australian support services Facebook group to talk and share support of other caregivers looking after FNDers / support advocates click on the link belowhttps://www.facebook.com/groups/588224248292396For more information about NDIS checkout Carers Australia @ www.carers australia.com.auhttps://www.carersaustralia.com.au/ndis-carers/what-is-the-ndis/https://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts check them out!What has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :)https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1https://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there. https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!https://www.neurokid.co.uk/A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fnd Information on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.Click below to hear more about FND Australia Support services and who Dr. Katherine Gill is https://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups' across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is:https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQOther podcasts/ blogs / vlogs to follow:itsmeitsmeitsfndhttps://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDer https://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacksfollow on Instagram @ Meg.jacks_TicTok: @megjacksInstagram follow Emma's journey :@emmas_fnd_funThe Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FNDPeople Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check outDylan AlcottAthelete , paraolympics , podcaster , raising awareness and voices of the disabledInstagram :@ listenable_podcast @dylanalcottWebsite: www.abilityfest.com.auElle StellaBusiness Success Coach , Paraolympian & intuitive healerInstagram: @iamellesteeleWebsite: www.iamellesteele.comCarly FindlayActivist, writer, Blogger with a condition called ichtchyosis.Instagram: @carlyfindlayWebsite: www.carlyfindlay.com.auSophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitudeInstagram: @sophjbutlerYouTube: https://youtu.be/wgfAYDlXXvMMeg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FNDInstagram: @Meg.Jacks_TicTok: MegjacksJulian Gavino(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representationInstagram:  @thedisabledhippie Nina Tame aka the Lunch LadyShe's a single mum who's disabled and a disability advocate. Parenting with disabilityWebsite: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/Chloè Hadenshe is an Australian actor YouTuber singer dancer and she's autistic. She beings awareness about Autism and talks openly about life with Autism.Instagram: @princesssapien Website: https://www.chloehayden.com.au/Youtube: Chloè HadenStyle like UFounded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.Website: https://stylelikeu.com/about-us/Lucy Dawsonwho unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.Instagram : @luuudawWebsite: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/Cripple MediaCripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren't the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It's really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awarenessInstagram: @cripple mediaWebsite: https://cripplemedia.com/about/ 

On this episode we get an update on our lovely Debrus and how she went on her surgery day. Also sending well wishes to Deb xo If you need someone to advocate for you and you are disabled there is the disability advocacy finder:Disability advocacy is acting, speaking or writing to promote, protect and defend the human rights of people with disability. The Australian Government, and some state and territory governments, fund independent advocacy to help people with disability who face complex challenges or are unable to advocate for themselves, and do not have family, friends or peers who can support them as informal advocates, to access advocacy support.To listen to Rods My FND Reality : his Caregiving story click belowhttps://thefndpodcast.simplecast.com/episodes/my-fnd-reality-caregiving-talking-to-rodneyCarer Gateway is an excellent resource provided by the federal government  to help support caregivers by giving resources, support , education, forums and more. We recently had an interview with Catholic care who runs Carer Gateway to learn more about them you can listen to their interview below :https://thefndpodcast.simplecast.com/episodes/supporting-caregivers-carer-gatewayFor more information on Carer Gateway https://www.carergateway.gov.au/their phone number is 1800 422 737also join their Facebook page to keep updated and their support groups.For the FND Australian support services Facebook group to talk and share support of other caregivers looking after FNDers / support advocates click on the link belowhttps://www.facebook.com/groups/588224248292396For more information about NDIS checkout Carers Australia @ www.carers australia.com.auhttps://www.carersaustralia.com.au/ndis-carers/what-is-the-ndis/https://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts check them out!What has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :)https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1https://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there. https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!https://www.neurokid.co.uk/A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fnd Information on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.Click below to hear more about FND Australia Support services and who Dr. Katherine Gill is https://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups' across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is: 'https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQOther podcasts/ blogs / vlogs to follow:itsmeitsmeitsfndhttps://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDer https://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacksfollow on Instagram @ Meg.jacks_TicTok: @megjacksInstagram follow Emma's journey :@emmas_fnd_funThe Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FND

In this episode we talk about the preparation of surgery as Deb prepares to head into surgery. How they tackle it as it seems to be part of their life more often or not. Update: Deb is well and recovering as we speak.information or links to check out:legal matters for caregivers ie power of attorney etc from Carers gatewayhttps://www.carergateway.gov.au/help-advice/legal-mattersPreparing for surgeryhttps://www.betterhealth.vic.gov.au/health/servicesandsupport/preparing-for-surgeryManual Handling Webinar:https://youtu.be/QfD457lbTmQIf you need someone to advocate for you and you are disabled there is the disability advocacy finder:Disability advocacy is acting, speaking or writing to promote, protect and defend the human rights of people with disability. The Australian Government, and some state and territory governments, fund independent advocacy to help people with disability who face complex challenges or are unable to advocate for themselves, and do not have family, friends or peers who can support them as informal advocates, to access advocacy support.To listen to Rods My FND Reality : his Caregiving story click belowhttps://thefndpodcast.simplecast.com/episodes/my-fnd-reality-caregiving-talking-to-rodneyCarer Gateway is an excellent resource provided by the federal government  to help support caregivers by giving resources, support , education, forums and more. We recently had an interview with Catholic care who runs Carer Gateway to learn more about them you can listen to their interview below :https://thefndpodcast.simplecast.com/episodes/supporting-caregivers-carer-gatewayFor more information on Carer Gateway https://www.carergateway.gov.au/their phone number is 1800 422 737also join their Facebook page to keep updated and their support groups.For the FND Australian support services Facebook group to talk and share support of other caregivers looking after FNDers / support advocates click on the link belowhttps://www.facebook.com/groups/588224248292396For more information about NDIS checkout Carers Australia @ www.carers australia.com.auhttps://www.carersaustralia.com.au/ndis-carers/what-is-the-ndis/https://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there. https://www.neurokid.co.uk/A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fnd Information on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.Click below to hear more about FND Australia Support services and who Dr. Katherine Gill is https://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups' across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is: 'https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQOther podcasts/ blogs / vlogs to follow:itsmeitsmeitsfndhttps://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDer https://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacksfollow on Instagram @ Meg.jacks_TicTok: @megjacksInstagram follow Emma's journey :@emmas_fnd_funThe Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FND

In this episode we explore what is often missed when we become caregivers for the first time. Join in as we talk about Caregiving on the caregivers hangout.  Webinar - this Friday 27th Aug at 1pm AESTSafe Manual Handling : caregivers Book at E: kate@fndaus.org.auIf you need someone to advocate for you and you are disabled there is the disability advocacy finder:Disability advocacy is acting, speaking or writing to promote, protect and defend the human rights of people with disability. The Australian Government, and some state and territory governments, fund independent advocacy to help people with disability who face complex challenges or are unable to advocate for themselves, and do not have family, friends or peers who can support them as informal advocates, to access advocacy support.To listen to Rods My FND Reality : his Caregiving story click belowhttps://thefndpodcast.simplecast.com/episodes/my-fnd-reality-caregiving-talking-to-rodneyCarer Gateway is an excellent resource provided by the federal government  to help support caregivers by giving resources, support , education, forums and more. We recently had an interview with Catholic care who runs Carer Gateway to learn more about them you can listen to their interview below :https://thefndpodcast.simplecast.com/episodes/supporting-caregivers-carer-gatewayFor more information on Carer Gateway https://www.carergateway.gov.au/their phone number is 1800 422 737also join their Facebook page to keep updated and their support groups.For the FND Australian support services Facebook group to talk and share support of other caregivers looking after FNDers / support advocates click on the link belowhttps://www.facebook.com/groups/588224248292396For more information about NDIS checkout Carers Australia @ www.carers australia.com.auhttps://www.carersaustralia.com.au/ndis-carers/what-is-the-ndis/To listen to our song playlist  started by our lovely Maggie on Spotify click on the link belowhttps://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=IyN0V1ENQdi1_6W6MrNjAAFND Merchandise to support FND Australia Support services by Chucky from @friendswithfndhttps://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts check them out!To listen to our song playlist  started by our lovely Maggie on Spotify click on the link below https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=IyN0V1ENQdi1_6W6MrNjAAFND Merchandise to support FND Australia Support services by Chucky from @friendswithfndhttps://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there. https://www.neurokid.co.uk/A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fnd FND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.https://fndaus.org.au/https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups' across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is: 'https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQOther podcasts/ blogs / vlogs to follow:itsmeitsmeitsfndhttps://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDer https://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacksfollow on Instagram @ Meg.jacks_TicTok: @megjacksThe Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FND 

In this episode we talk about Caregiving in a sense of a caregivers perspective and what we need to do to be an advocate as a caregiver. The Australian Practitioner Regulation Agency: How are complaints or concerns managed?https://www.ahpra.gov.au/Notifications/How-to-submit-a-concern.aspxHuman Rights Commission : How to make a complainthttps://humanrights.gov.au/complaintsCommonwealth Ombudsman making a complaint: what they dohttps://www.ombudsman.gov.au/How-we-can-helphere's a great guide on how to advocate for yourself or others http://www.sa.agedrights.asn.au/files/19_how_to_advocate_yourself_and_others.pdfIf you need someone to advocate for you and you are disabled there is the disability advocacy finder:Disability advocacy is acting, speaking or writing to promote, protect and defend the human rights of people with disability. The Australian Government, and some state and territory governments, fund independent advocacy to help people with disability who face complex challenges or are unable to advocate for themselves, and do not have family, friends or peers who can support them as informal advocates, to access advocacy support.To listen to Rods My FND Reality : his Caregiving story click belowhttps://thefndpodcast.simplecast.com/episodes/my-fnd-reality-caregiving-talking-to-rodneyCarer Gateway is an excellent resource provided by the federal government  to help support caregivers by giving resources, support , education, forums and more. We recently had an interview with Catholic care who runs Carer Gateway to learn more about them you can listen to their interview below :https://thefndpodcast.simplecast.com/episodes/supporting-caregivers-carer-gatewayFor more information on Carer Gateway https://www.carergateway.gov.au/their phone number is 1800 422 737also join their Facebook page to keep updated and their support groups.For the FND Australian support services Facebook group to talk and share support of other caregivers looking after FNDers / support advocates click on the link belowhttps://www.facebook.com/groups/588224248292396For more information about NDIS checkout Carers Australia @ www.carers australia.com.auhttps://www.carersaustralia.com.au/ndis-carers/what-is-the-ndis/To listen to our song playlist  started by our lovely Maggie on Spotify click on the link belowhttps://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=IyN0V1ENQdi1_6W6MrNjAAFND Merchandise to support FND Australia Support services by Chucky from @friendswithfndhttps://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts check them out!To listen to our song playlist  started by our lovely Maggie on Spotify click on the link below https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=IyN0V1ENQdi1_6W6MrNjAAFND Merchandise to support FND Australia Support services by Chucky from @friendswithfndhttps://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there. https://www.neurokid.co.uk/A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fnd FND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.https://fndaus.org.au/https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups' across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is: 'https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQOther podcasts/ blogs / vlogs to follow:itsmeitsmeitsfndhttps://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDer https://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacksfollow on Instagram @ Meg.jacks_TicTok: @megjacksThe Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FND      

In his episode we talk a bit about Advance care directives. It's about talking to those we care for about keeping their independence and choices for if there comes a point where they cannot speak and their voices are heard.  Click on the link to read up on more information About advance care planning https://www.advancecareplanning.org.au/Caregiving during covid timeshttps://www.redcross.org/get-help/how-to-prepare-for-emergencies/types-of-emergencies/coronavirus-safety/family-caregivers.htmlways to cope during covid times & caregiving mentally:https://dailycaring.com/coronavirus-and-caregiver-mental-health-8-coping-tips/https://www.consumerreports.org/elder-care/coping-strategies-for-family-caregivers/To listen to Rods My FND Reality : his Caregiving story click belowhttps://thefndpodcast.simplecast.com/episodes/my-fnd-reality-caregiving-talking-to-rodneyCarer Gateway is an excellent resource provided by the federal government  to help support caregivers by giving resources, support , education, forums and more. We recently had an interview with Catholic care who runs Carer Gateway to learn more about them you can listen to their interview below :https://thefndpodcast.simplecast.com/episodes/supporting-caregivers-carer-gatewayFor more information on Carer Gateway https://www.carergateway.gov.au/their phone number is 1800 422 737also join their Facebook page to keep updated and their support groups.For the FND Australian support services Facebook group to talk and share support of other caregivers looking after FNDers / support advocates click on the link belowhttps://www.facebook.com/groups/588224248292396 For more information about NDIS checkout Carers Australia @ www.carers australia.com.auhttps://www.carersaustralia.com.au/ndis-carers/what-is-the-ndis/To listen to our song playlist  started by our lovely Maggie on Spotify click on the link belowhttps://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=IyN0V1ENQdi1_6W6MrNjAAFND Merchandise to support FND Australia Support services by Chucky from @friendswithfndhttps://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there. FND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.https://fndaus.org.au/https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups' across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is: https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQMY FND APP is another great tool that can be downloaded at any App Store which can help you monitor your FND symptoms and document it so you can see it for yourself long term and keep a log. Also it can be great to take along for appointment. Other podcasts to follow:itsmeitsmeitsfndhttps://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1The Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FND.    

Most parents facing lockdown and homeschooling start pacing rapidly, pulling out tuffs of hair. Being forced to stay at home with small children, without access to parks and other distractions can be challenging. So if it's hard for those of us with able-bodied children, how are carers faring when they are cut off from the supports they need on a daily basis? Elena Katrakis is the CEO of Carers NSW. She explains how the lockdown has impacted carers in Australia, how carers can try to access support (through The Carer Gateway) and how we might help those caring for others.

In this episode we talk about burn out with caregiving and ways to prevent it. Self care , accepting help and a lot more is discussed here on this episode of Caregiver Hangout with Rod.looking after yourself whilst caregiving https://www.carergateway.gov.au/help-advice/looking-after-yourselfyoung people caregiving network support:https://youngcarersnetwork.com.au/To listen to Rods My FND Reality : his Caregiving story click belowhttps://thefndpodcast.simplecast.com/episodes/my-fnd-reality-caregiving-talking-to-rodneyCarer Gateway is an excellent resource provided by the federal government  to help support caregivers by giving resources, support , education, forums and more. We recently had an interview with Catholic care who runs Carer Gateway to learn more about them you can listen to their interview below :https://thefndpodcast.simplecast.com/episodes/supporting-caregivers-carer-gatewayFor more information on Carer Gateway https://www.carergateway.gov.au/their phone number is 1800 422 737also join their Facebook page to keep updated and their support groups.For the FND Australian support services Facebook group to talk and share support of other caregivers looking after FNDers / support advocates click on the link belowhttps://www.facebook.com/groups/588224248292396 For more information about NDIS checkout Carers Australia @ www.carers australia.com.auhttps://www.carersaustralia.com.au/ndis-carers/what-is-the-ndis/HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/FND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.https://fndaus.org.au/https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups' across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is: 'https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ To listen to our song playlist on Spotify click on the link belowhttps://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=IyN0V1ENQdi1_6W6MrNjAA 

In this episode join myself and Rod as we talk about keeping your loved one safe and helping them be safe at home. Especially trying to keep them as independent as possibleTo access more information on this episode please click on the link below.For  more information about making your home safe here is the link with Carer Gatewayhttps://www.carergateway.gov.au/help-advice/homeEven this is for falls prevention for the elderly this is still valid for falls prevention:https://www.betterhealth.vic.gov.au/site-5/health/healthyliving/falls-prevention-at-homePersonal Care alarm information from the better health channel:https://www.betterhealth.vic.gov.au/health/serviceprofiles/personal-alert-victoria-serviceEvery council provides services or additional services to help those in need in the community. Each council is different to find out what your council provides please contact your individual council.for more information of what services might be available to you go to:www.know your council.vic.gov.auIf you're looking after someone 65 years or older they may be eligible for this service to look for additional services  My Aged Carehttps://www.myagedcare.gov.au/To listen to Rods My FND Reality : his Caregiving story click belowhttps://thefndpodcast.simplecast.com/episodes/my-fnd-reality-caregiving-talking-to-rodneyCarer Gateway is an excellent resource provided by the federal government  to help support caregivers by giving resources, support , education, forums and more. We recently had an interview with Catholic care who runs Carer Gateway to learn more about them you can listen to their interview below :https://thefndpodcast.simplecast.com/episodes/supporting-caregivers-carer-gatewayFor more information on Carer Gateway https://www.carergateway.gov.au/their phone number is 1800 422 737also join their Facebook page to keep updated and their support groups.For the FND Australian support services Facebook group to talk and share support of other caregivers looking after FNDers / support advocates click on the link belowhttps://www.facebook.com/groups/588224248292396 For more information about NDIS checkout Carers Australia @ www.carers australia.com.auhttps://www.carersaustralia.com.au/ndis-carers/what-is-the-ndis/HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/FND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.https://fndaus.org.au/https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups' across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is: 'https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ To listen to our song playlist on Spotify click on the link belowhttps://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=IyN0V1ENQdi1_6W6MrNjAA  

Welcome to the new segment where we are here to help support the caregivers who look after us FNDers. As much as it is difficult going through having this condition for most of us who have family and friends who become our permanent carers it is just as difficult if not heartbreaking to go through. With this in mind we hope this segment can help support provide resources and direct you to places of support encouragement and give you friendly voices to listen to, that you're not alone on this journey. Rod is the son of Deb from the Deb and Detty show he is the caregiver and also now a support worker. Aiming to provide assistance where he can. To listen to Rods My FND Reality : his Caregiving story click belowhttps://thefndpodcast.simplecast.com/episodes/my-fnd-reality-caregiving-talking-to-rodneyCarer Gateway is an excellent resource provided by the federal government  to help support caregivers by giving resources, support , education, forums and more. We recently had an interview with Catholic care who runs Carer Gateway to learn more about them you can listen to their interview below :https://thefndpodcast.simplecast.com/episodes/supporting-caregivers-carer-gatewayFor more information on Carer Gateway https://www.carergateway.gov.au/their phone number is 1800 422 737also join their Facebook page to keep updated and their support groups.Planning for emergencies especially when it happens to yourself you need to plan for and ensure that your loved one is still looked after.  For an emergency care plan and card look to this link below : https://www.carergateway.gov.au/help-advice/planningFor the FND Australian support services Facebook group to talk and share support of other caregivers looking after FNDers / support advocates click on the link belowhttps://www.facebook.com/groups/588224248292396HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/FND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.https://fndaus.org.au/https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups' across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is: 'https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ To listen to our song playlist on Spotify click on the link belowhttps://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=IyN0V1ENQdi1_6W6MrNjAA  

For more information on Carer Gateway https://www.carergateway.gov.au/their phone number is 1800 422 737also join their Facebook page to keep updated and their support groups.HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/ FND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.https://fndaus.org.au/FND Action: FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK. FND Action provide support to those diagnosed and their caregivers by hosting online support groups, an informative website and actively advocating for the cause.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups' across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/

For more information on Carer Gateway https://www.carergateway.gov.au/their phone number is 1800 422 737also join their Facebook page to keep updated and their support groups.HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/ FND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.https://fndaus.org.au/FND Action: FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK. FND Action provide support to those diagnosed and their caregivers by hosting online support groups, an informative website and actively advocating for the cause.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups' across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/ 

We are chatting again via zoom with: - Naomi Lettieri - Community Liaison Nurse at Anam Cara House Colac, and Annie Keogh, who is a Carer & Community Education Officer with Carers Victoria. Carer Gateway - 180 422 737 www.carersvictoria.org.au/ www.anamcarahousecolac.org.au Facebook -/AnamCaraHouseColac 03 5233 8203