IDD Health Matters

In this episode of IDD Health Matters, Dr. Craig Escudé sits down with long-time advocate and leader Shelly Chandler to explore a lifetime of service and passion in the field of intellectual and developmental disabilities (IDD). From growing up immersed in the world of special education to running provider agencies and leading the Iowa Association of Community Providers for 17 years, Shelly shares how her personal and professional journey continues to influence better health outcomes for individuals with IDD. Recorded live at the Kansas InterHab Conference, this conversation dives into the challenges of bridging communication gaps between providers, healthcare professionals, and managed care organizations—and why learning to "speak the same language" is essential for improving equity in healthcare. Shelly also offers key advice on building human-centered relationships, listening without assumptions, and staying relentless in the pursuit of opportunity and dignity for every person with IDD.

On this episode of IDD Health Matters, Dr. Craig Escudé sits down with two remarkable nurses—Patty Haberkorn and Deanna Cox—at the Illinois Developmental Disabilities Nurses Conference. With a combined four decades of experience supporting people with intellectual and developmental disabilities (IDD), Patty and Deanna share powerful insights into nursing, advocacy, communication, and the often-overlooked emotional rewards of this career path. Patty, who began her journey as a nurse and now serves as Executive Director at Futures Unlimited, and Deanna, a dedicated nurse who found her calling in DD care after working in long-term care, both reflect on how they "fell into the field" and stayed out of passion. They open up about the gaps in nursing education regarding IDD, the importance of understanding non-verbal communication, and the critical role of baseline behavior in diagnosing health issues. This episode covers: The value of advocacy from nurses and direct support professionals Real-world challenges in educating physicians and gaining respect for individuals with IDD Why knowing a person's baseline behavior is crucial for accurate medical care The emotional connection between care staff and the individuals they support Staffing and funding challenges in the IDD sector—and why passion still keeps them going Whether you're a nurse, DSP, administrator, or someone curious about working in disability services, this conversation offers heartfelt stories and essential wisdom about the importance—and joy—of working in this field.

In this inspiring episode of IDD Health Matters with Dr. Craig Escudé, we welcome Tony Thomas, Executive Director of Welcome House in Cleveland, Ohio. With over 24 years of leadership experience, Tony shares his remarkable journey into the field of intellectual and developmental disabilities (IDD) — from a life-changing family discovery to a lifelong career dedicated to empowering individuals and advancing health equity. Tony discusses how frontline Direct Support Professionals (DSPs) are the heart of the disability services field, his innovative initiatives to improve healthcare access for people with IDD, and how Welcome House is creating clear career pathways for DSPs, including specialized medical support roles. He also talks about the urgent need to address workforce shortages and improve wages for caregivers. If you're passionate about making a difference, building a meaningful career, or learning how true inclusion transforms lives, this episode is packed with wisdom, hope, and practical ideas for the future of IDD services.

In this episode of IDD Health Matters, Dr. Craig Escudé sits down with Dr. Alice Bacherini, a postdoctoral research fellow at the University of Perugia in Italy, to explore how psychological research is helping dismantle biases in healthcare for people with intellectual and developmental disabilities (IDD). Dr. Bacherini discusses her groundbreaking work developing tools to measure erroneous assumptions and self-efficacy among physicians when treating individuals with IDD. Together, they dive into how clinician attitudes impact health equity, the role of social dominance orientation in perpetuating stereotypes, and why direct interaction and inclusive communication are essential to better care outcomes. Tune in to hear why IDD-specific training—especially hands-on experiences—can shift perspectives and improve quality of care. Dr. Bacherini also shares where to find her published scale, the Beliefs About Adults with ID (BAAID), and her three key pieces of advice for creating a more inclusive healthcare system. Learn more at: replacingrisk.com Career opportunities with Friends for Life: friendsforliferc.com

In this powerful episode of IDD Health Matters, Dr. Craig Escudé sits down with longtime civil rights attorney, disability advocate, and former Acting Administrator of the Administration for Community Living, Alison Barkoff. Now serving as the Hirsch Health Law and Policy Professor at George Washington University's Milken Institute School of Public Health, Alison shares her personal journey rooted in her experiences as a sibling of a person with an intellectual disability—and how that shaped her life's mission to advance health equity, civil rights, and inclusion for people with intellectual and developmental disabilities (IDD). Together, they explore: The historic update to Section 504 of the Rehabilitation Act—modernizing anti-discrimination protections in healthcare for the first time in nearly 50 years. The hard truths about ableism, medical bias, and discriminatory crisis standards of care exposed during the COVID-19 pandemic. The urgent need to incorporate clinical care curricula into medical and health professional training to eliminate health disparities for people with IDD. The challenges of navigating a fragmented service system—and why it's still worth the fight. Alison also shares her top three calls to action for improving the lives of people with IDD: building personal connections, embracing inclusive healthcare reform, and confronting the systemic complexity with commitment and compassion. If you're a healthcare professional, policymaker, or advocate looking to better understand the intersection of disability rights, healthcare, and public policy—this is an episode you don't want to miss.

In this powerful episode of IDD Health Matters, Dr. Craig Escudé sits down with renowned disability advocate Liz Weintraub to explore what true health equity looks like for people with intellectual and developmental disabilities (IDD). Liz, a senior policy specialist at the Association of University Centers on Disabilities (AUCD), brings her lived experience and professional expertise to the conversation—sharing insights on advocacy, accessible healthcare, and the importance of plain language in medical settings. Liz discusses AUCD's national impact through 62 university-based centers across the U.S. and territories, her work on Capitol Hill, and key legislative priorities like ending subminimum wage (14c) and expanding home and community-based services. She also opens up about her own healthcare journey after a diabetes diagnosis, emphasizing the need for clear communication and respect for patient autonomy. Listeners will also learn about Tuesdays with Liz: Disability Policy for All, Liz's YouTube show that makes complex policy issues accessible to everyone. She shares how self-advocacy helped her transition out of institutional care and inspired her to empower others to do the same. Tune in to hear Liz's three essential tips for improving healthcare for people with IDD and why her message of "healthcare for all" is more important than ever.

In this inspiring episode of IDD Health Matters, Dr. Craig Escudé is joined by Dr. Ben Warner, a healthcare professional whose unique journey spans from dental practice to medical school—all fueled by a lifelong desire to serve those with the greatest needs. Dr. Warner shares how his early experiences volunteering in hospitals sparked a deep commitment to healthcare and how that commitment evolved from dentistry to medicine. His story is one of resilience, family support, and a calling to provide equitable, compassionate care for individuals with intellectual and developmental disabilities (IDD). Now a board member of the American Academy of Developmental Medicine & Dentistry (AADMD), Dr. Warner discusses his role in advancing the mission of healthcare equity, and how his work has consistently centered around improving access and quality of care for people with complex health needs. Tune in to hear Dr. Warner's three key takeaways for improving healthcare: recognizing that we are all patients, prioritizing care for those with the greatest needs, and embracing the importance of service and cooperation in creating a better healthcare system for all. Learn more about AADMD at aadmd.org and explore tools to enhance health equity at replacingrisk.com. This podcast is a joint production between Friends for Life and IntellectAbility. Visit friendsforliferc.com to explore career opportunities in the IDD field.

In this episode of IDD Health Matters, Dr. Craig Escudé sits down with Richard Chapman, Assistant Director for Disability Leadership at the Partnership for People with Disabilities in Richmond, Virginia. With a background in mental health counseling and a deep commitment to advancing equity, Richard shares his journey and current work at the intersection of mental health and self-determination for people with intellectual and developmental disabilities (IDD). Richard dives into how increasing self-determination—the ability for individuals to make their own life choices—can lead to better mental health outcomes and an improved quality of life. He discusses his current research, supported by the National Research Consortium on Intellectual Disability and Mental Health, which aims to show a causal relationship between self-determination and reduced psychopathology. Throughout the conversation, Richard highlights the importance of inclusion, cautions against the overuse of polypharmacy, and advocates for restraint-free support systems. He emphasizes that people with IDD not only deserve access to psychotherapy but also thrive when they're empowered to make their own decisions. Don't miss this powerful discussion on redefining support systems, challenging outdated models, and building a more equitable future for people with IDD.

In this episode of the IDD Health Matters Podcast, Dr. Craig Escudé sits down with Eddie Tuduri, a world-class drummer whose career included playing with legends like The Beach Boys, Loggins & Messina, Del Shannon, and Ricky Nelson. But in 1997, a life-altering accident left him paralyzed—an event that ultimately led him to create the Rhythmic Arts Project (TRAP), a groundbreaking program that uses rhythm and percussion to enhance learning, communication, and rehabilitation for individuals with intellectual and developmental disabilities (IDD). Eddie shares his inspiring story of resilience, the impact of music in therapy, and how his passion for drumming transformed into a global movement. He and Dr. Escudé discuss the importance of presuming competence, staying inquisitive, and the power of volunteering in making a meaningful impact on the lives of people with disabilities.

In this episode of IDD Health Matters, Dr. Craig Escudé sits down with Rachel Potts, a dedicated nurse and Director of Nursing for ICF homes, to discuss the challenges and rewards of providing healthcare for individuals with intellectual and developmental disabilities (IDD). Rachel shares her journey into the field, beginning as a school nurse for children with autism, and how she quickly developed a passion for understanding and communicating with non-verbal individuals. Throughout the conversation, Rachel and Dr. Escudé explore the critical need for better training and resources for healthcare professionals, the importance of observation skills in diagnosing health concerns, and the role of direct support professionals (DSPs) in advocating for individuals with IDD. Rachel also shares real-world experiences, including a powerful story about learning to recognize subtle health cues that might otherwise be overlooked. Tune in to learn about the barriers in IDD healthcare, the importance of collaboration between providers, and how simple tools—like augmentative communication apps—can make a big difference. Whether you're a healthcare provider, caregiver, or advocate, this episode offers valuable insights into improving healthcare equity for people with IDD.

In this episode of IDD Health Matters, Dr. Craig Escudé sits down with Chris Helfrich, a dedicated nurse and an integral member of the Developmental Disabilities Nurses Association, live from the DDNA annual conference in New Orleans. Chris shares her unexpected journey into the field, her experiences navigating healthcare for individuals with developmental disabilities, and the critical need for better education and training for healthcare providers. Chris also discusses her groundbreaking work in Illinois, where she has been instrumental in opening specialized community-based homes for individuals with Prader-Willi syndrome. She highlights the challenges of healthcare disparities, the importance of structured environments for individuals with unique needs, and the inspiring impact of these initiatives on both individuals and staff. Tune in for an insightful conversation about the evolving landscape of healthcare for people with IDD, the strides being made in nursing education, and what the future holds for better, more inclusive healthcare solutions.

In this dynamic episode of the IDD Health Matters Podcast, Dr. Craig Escude sits down with Bob Sattler—whose extensive experience and passion for person-centered care have transformed developmental disability services. Recorded live at the NASD Conference in Portland, Oregon, this conversation delves into Bob's unique journey from a camp counselor and direct support professional to a pioneering consultant and co-founder of Support Development Associates (SDA). Bob Satler shares how his career evolved alongside the movement toward true person-centered practices, emphasizing that treating individuals as people first is far more than a buzzword—it's a transformative approach that empowers both service recipients and their support teams. He explains how effective person-centered care involves not only ensuring safety and health but also fostering autonomy, fulfillment, and genuine quality of life. Through real-life examples and insights from his work, Bob highlights the importance of listening to the very people whose lives are at the heart of these services, and the challenges of reshaping organizational cultures to make person-centeredness the norm. Join Dr. Escude and Bob Sattler as they explore the balance between safety and autonomy, discuss innovative strategies to integrate person-centered practices into everyday operations, and envision a future where support systems are as dynamic and compassionate as the people they serve. Tune in for an enlightening conversation that promises to inspire professionals and advocates dedicated to advancing health equity for individuals with intellectual and developmental disabilities.

In this episode of the IDD Health Matters Podcast, Dr. Craig Escudé sits down with John Silfies, keynote speaker at the Kansas InterHab Conference and founder of Silfies Media, a company dedicated to making the developmental disabilities (DD) field famous. John shares his journey from Direct Support Professional (DSP) to marketing expert, emphasizing the power of storytelling in raising awareness, attracting new professionals, and celebrating the lives of individuals with disabilities. He discusses how his media company helps provider agencies, government organizations, and local communities by crafting impactful videos and social media campaigns that highlight the real stories and achievements within the IDD field. Throughout the conversation, John and Dr. Escudé explore the importance of mental health and gratitude in a field that is often stressful but deeply rewarding. They discuss how sharing stories fosters connection, increases retention among DSPs, and strengthens community support for IDD services. John also shares a powerful success story of how his company's videos have helped counties pass critical funding levies and amplified the voices of individuals with disabilities, proving that visibility and awareness can drive real change. Tune in for an inspiring conversation about the impact of storytelling, the importance of celebrating even the smallest victories, and the dedication of those working in the IDD field.

On this episode of IDD Health Matters, Dr. Craig Escudé sits down with Johnathon Crumley, Chief Operations Officer of IntellectAbility, to discuss his unexpected journey into the field of intellectual and developmental disability (IDD) support. Originally planning a career as a military chaplain, Jonathan's path shifted when he discovered his passion for improving services and quality of life for individuals with IDD. In this insightful conversation, Johnathon shares how person-centered thinking, proactive healthcare approaches, and celebrating small wins can transform support systems. He also dives into the critical work IntellectAbility is doing to provide tools, training, and resources that enhance care for people with IDD. Tune in to learn how balancing health, safety, and personal choice leads to a more fulfilling life for individuals with disabilities. For more information on IntellectAbility's resources, visit ReplacingRisk.com.

In this episode of IDD Health Matters, Dr. Craig Escudé welcomes Sharon Parker Love, a nurse with 56 years of experience, to discuss her journey in the field of intellectual and developmental disabilities (IDD) nursing. Recorded at the Illinois Developmental Disabilities Nurses Association Conference, Sharon shares her remarkable career—from starting with a state grant program to dedicating over three decades to Trinity Services, where she has helped individuals with dual diagnoses and complex medical needs. Sharon dives into her work in crisis prevention, recounting heartbreaking and inspiring stories of individuals in need, including an individual who spent eight months in an emergency room before receiving proper care. She emphasizes the importance of observation skills, direct care staff training, and a detective-like approach to uncovering hidden medical conditions that often manifest as behavioral challenges. Tune in for invaluable insights into the evolving role of nurses in IDD care and the crucial need for more professionals in this field.

Welcome to another insightful episode of IDD Health Matters, hosted by Craig Escudé, MD, FAAFP, FAADM, president of IntellectAbility. In this episode, we explore pioneering approaches to healthcare for individuals with intellectual and developmental disabilities. Join us as Dr. Escude welcomes two distinguished guests from the international arena: Professor Angela Hassiotis from University College London and Dr. Rory Sheehan from King's College London. Professor Hassiotis, a seasoned consultant psychiatrist in the NHS, delves into her groundbreaking research and clinical work aimed at personalizing interventions for aggressive challenging behaviors in adults with IDD. She shares the promising beginnings of the PETAL study in the UK, designed to offer multimodal interventions to those in need. Dr. Sheehan discusses his role as a senior clinical lecturer and psychiatrist, focusing on patients with learning disabilities who encounter legal issues. He highlights the significance of utilizing large data sets to improve care delivery and touches upon the disparities in psychotropic medication use among the IDD population. Together, they discuss the intricacies of the UK's National Health Service and the critical need for specialized training and capacity building in the field of intellectual disability psychiatry. This episode not only sheds light on innovative research and clinical practices but also emphasizes the importance of incorporating lived experiences to enhance intervention strategies. For more insights and detailed discussions on improving healthcare outcomes for the IDD community, tune into this episode of IDD Health Matters. Don't forget to check the show notes for more information and links to further resources.

In this insightful episode of IDD Health Matters, hosted by Craig Escudé, MD, FAAFP, FAADM, president of IntellectAbility, welcomes Dr. Brandi Kelly, the Clinical Director for Louisiana's Developmental Disability Office. Dr. Kelly discusses her pivotal role in overseeing the state's virtual Resource Center, focusing on enhancing community and provider skills to better serve individuals with co-occurring intellectual, developmental, behavioral, and complex medical needs. Highlighting the unique challenges and innovative solutions in Louisiana, Dr. Kelly shares her personal connection to the field through her sister's experiences and emphasizes the importance of wellness, relationships, and clear communication in healthcare. Join us as we explore how simple adaptations in treatment and care can significantly impact health equity for those with intellectual and developmental disabilities.

Welcome to another enlightening episode of IDD Health Matters, hosted by Craig Escudé, MD, FAAFP, FAADM, president of IntellectAbility, where we delve into health, wellness, and equity for individuals with intellectual and developmental disabilities. In this episode, we are joined by the talented Cody Clark, a magician and autistic self-advocate from Louisville, Kentucky. From a magical beginning in Gulf Shores, Alabama, Cody shares how a family vacation and an inspiring stage moment sparked his journey into the world of magic at the age of eleven. This episode isn't just about tricks; it's about transformation and advocacy. Cody discusses how embracing his autism publicly became a crucial part of his performances, allowing him to connect deeply with audiences and foster understanding about autism through his art. Cody also sheds light on how healthcare providers can better support individuals with autism, stressing the importance of clear communication and sensory-friendly environments. From the quietness of a dentist's office to the challenges at the pediatrician, Cody's insights offer invaluable advice for medical professionals. Tune in as Cody performs a couple of his thoughtful magic tricks live, demonstrating how magic can not only entertain but also educate and advocate for the autism community. Don't miss this magical blend of art and advocacy that Cody brings to our show. For more about Cody's work or to book him for an event, visit CodyClarkMagic.com. Dive deeper into this episode's content by watching the video version on our YouTube channel at IDD Health Matters Podcast.

Join Dr. Craig Escude in this enlightening episode of IDD Health Matters as he sits down with Robert Scholz from the University of New Hampshire's Institute on Disability. Robert shares in-depth insights into the National Center for START Services, a pioneering program designed to provide mental health support and crisis prevention for individuals with intellectual and developmental disabilities (IDD). Starting in the late 1980s in Massachusetts, START has expanded nationwide, aiming to address healthcare disparities and improve access to mental health services for the IDD community. Listen as Robert discusses the program's origins, its evolution, and the real-world impact it has on families and individuals across the country. This episode is a must-hear for anyone interested in mental health advocacy and the innovative approaches to supporting those with IDD. For more details on START and how it could benefit your community, visit the link in our show notes.

In this compelling episode of IDD Health Matters, Dr. Craig Escudé sits down with Cathy Service, a nurse practitioner with decades of experience in the field of intellectual and developmental disabilities (IDD). Cathy shares her inspiring journey, from her early days working in a state institution to becoming a leader in dementia care for individuals with IDD. Listen as Cathy discusses the challenges and triumphs of transitioning from institutional care to community-based supports, the importance of education and training for healthcare providers, and her pioneering work in dementia care. She emphasizes the need to honor each individual's unique story and highlights strategies for fostering well-being across the lifespan. From her research on aging and dementia to her advocacy for inclusion and kindness in community settings, Cathy's insights are both thought-provoking and practical. Whether you're a healthcare professional, caregiver, or advocate, this episode offers valuable lessons on creating meaningful, person-centered care for people with IDD. Tune in for an engaging conversation filled with wisdom, compassion, and actionable advice.

In this inspiring episode of the IDD Health Matters Podcast, Dr. Craig Escude is joined by three dedicated occupational therapists from UC Health at the University of Colorado. Kelly Corley, Brie Williams, and Margaret Reese share their journeys into the field of occupational therapy and their specific involvement with individuals with intellectual and developmental disabilities (IDD). They delve into the details of the Sunflower Program, an initiative they've pioneered to enhance the hospital experience for patients with IDD. The therapists discuss innovative methods they employ, such as holistic evaluations and tailored environmental adjustments, to ensure comprehensive care. This conversation not only highlights the significance of inclusive health practices but also serves as a beacon for other institutions aiming to improve health equity. Tune in to learn how the Sunflower Program is making a meaningful difference in the lives of patients by integrating sensory considerations, behavioral plans, and a multidisciplinary approach to patient care.

In this episode of IDD Health Matters, Dr. Craig Escudé is joined by Bethany Toledo and Becky Watson from the Ohio Alliance of Direct Support Professionals (OADSP). Together, they discuss the vital role of Direct Support Professionals (DSPs) in supporting individuals with intellectual and developmental disabilities. Bethany and Becky share OADSP's mission to educate, elevate, and empower DSPs through innovative programs like DSP University, which introduces high school students to the profession via education and hands-on experience. Explore the credentialing pathways, leadership development initiatives, and advocacy efforts that are transforming the DSP field. From state-wide programs like the DSP Experience to leadership retreats like Launchpad, this episode highlights how OADSP is elevating DSPs and strengthening the IDD community. Bethany and Becky also emphasize the importance of recognizing health destabilization in individuals supported by DSPs and the value of self-care for those in the field. Whether you're a current DSP, exploring the profession, or seeking to implement similar programs in your area, this episode offers invaluable insights and resources. For more information, visit oadsp.org or explore free tools on OADSP TV Plus. Don't miss this inspiring conversation about building a stronger, healthier future for the IDD community!

In this episode of the IDD Health Matters Podcast, host Dr. Craig Escudé sits down with Dr. David Fray, a trailblazer in dentistry and healthcare for individuals with intellectual and developmental disabilities (IDD). Dr. Fray shares his inspiring journey, from growing up in a disability-friendly household to a career that has spanned private practice, teaching, global health initiatives, and leadership roles in state and international healthcare systems. Together, they discuss the importance of collaborative care, the need for person-centered and lifespan-focused health planning, and the transformative power of cultural empathy in supporting individuals with IDD. Dr. Fray also highlights his work with the American Academy of Developmental Medicine and Dentistry (AADMD) and the impact of global initiatives in advancing healthcare equity. Don't miss this enlightening conversation filled with practical insights, personal stories, and a call to action for a more inclusive healthcare system.

In this special episode of IDD Health Matters, Dr. Craig Escudé is joined by John Dickerson, a lifelong advocate and innovator in the field of supports and services for individuals with intellectual and developmental disabilities (IDD). Recorded live at the NASDDDS conference in Portland, Oregon, John shares his inspiring journey that began in 1973 with The Arc, his commitment to empowering individuals with IDD, and the pivotal moments that shaped his career. John discusses the creation of Quillo, a transformative platform designed to inspire and educate families, individuals, and staff through microlearning. Learn how Quillo is addressing key challenges such as staff turnover, communication gaps, and the need for person-centered approaches in disability services. John also shares profound insights on advocacy, positivity, and finding joy in everyday moments. His practical advice, including lessons from positive psychology and the importance of being present, will leave you inspired to make a difference in your community. Tune in to discover how small changes and innovative tools can lead to big impacts in the lives of individuals with IDD and those who support them. For more information on Quillo, visit MyQuillo.com. Show Notes: Learn about Friends for Life Residential Care: friendsforliferc.com Explore tools to improve health equity for individuals with IDD: ReplacingRisk.com Don't miss this heartfelt conversation filled with wisdom, optimism, and actionable strategies to create a better future for all.

In this episode of the IDD Health Matters Podcast, Dr. Craig Escudé welcomes Kelley Shepherd, a dedicated Direct Support Professional (DSP) with over 15 years of experience. Kelley shares her perspective on what it means to truly support individuals with intellectual and developmental disabilities (IDD) in living their best lives. From advocating for dignity of risk to respecting personal choices and supporting meaningful growth, Kelley emphasizes the importance of seeing every individual's unique potential. She shares inspiring stories of empowerment, such as helping individuals explore new experiences and advocating for person-centered care during healthcare visits. Kelley also highlights the often-invisible yet critical role of DSPs in ensuring individuals with IDD thrive, describing her work as "stepping into the shadows so those she supports can shine in the light." Her three key tips—embracing new experiences, recognizing everyone's gifts, and standing up for oneself—are valuable lessons for anyone involved in this field. Join us for this heartfelt conversation that sheds light on the profound impact of DSPs and celebrates the small but significant victories that make a difference in the lives of individuals with IDD.

In this heartfelt episode of IDD Health Matters, Dr. Craig Escude sits down with Deb Davis, a dedicated nurse and advocate for individuals with intellectual and developmental disabilities (IDD). Deb shares her inspiring journey into the field of IDD support, reflecting on how she found her calling and became a champion for person-centered care. Deb discusses the challenges of working in this field, including her early experiences, the importance of person-centered thinking, and how she overcame feelings of being unprepared to become an expert through relentless learning and certification with the Developmental Disabilities Nurses Association (DDNA). She also highlights the transformative power of listening and observing to truly understand and support individuals, particularly those who communicate in unique ways. Listeners will gain valuable insights into balancing what is important to a person versus what is important for a person, the significance of people-first language, and how small shifts in perspective can foster inclusion and dignity. Deb's passion, humor, and wisdom make this episode a must-listen for anyone involved in supporting individuals with IDD. Tune in to hear why Deb believes this field attracts “the best people in the world” and how her commitment to this work continues to make a lasting impact—even in retirement.

In this episode of the IDD Health Matters Podcast, host Dr. Craig Escudé is joined by Julie Foster Hagan, Louisiana's State Director of Developmental Disability Services. Recorded live from the NASDDDS conference, Dr. Escudé and Julie discuss the vital work being done to enhance health equity and employment opportunities for individuals with intellectual and developmental disabilities. Julie shares insights into Louisiana's health equity initiatives, including a strategic focus on data collection and the role of Health Equity Action Teams within the state's Department of Health. She highlights the impact of the American Rescue Plan Act, enabling projects focused on improving service accessibility and vocational programs. Julie also delves into the importance of integrating people with disabilities into the broader community, emphasizing dignity, respect, and person-centered support. She discusses Louisiana's innovative programs, such as Operation House Call, which trains medical residents to better understand the unique experiences of individuals with disabilities. The episode wraps up with Julie's three key insights on advancing support and advocacy in the field, including promoting community awareness, expanding employment opportunities, and honoring individual choice in all aspects of life. Tune in for an inspiring look at transformative initiatives that aim to foster a more inclusive and supportive community for all.

In this episode of IDD Health Matters, Dr. Craig Escudé welcomes Mary Brogan, the state director for developmental disability services in Hawaii. Mary shares her extensive experience managing programs that impact individuals with intellectual and developmental disabilities (IDD), including the oversight of the 1915(c) Medicaid Waiver and neurotrauma services. She highlights the unique challenges of providing dental care and the importance of accessible health services tailored to meet the needs of people with IDD in Hawaii. Mary and Dr. Escudé dive into the critical importance of person-centered practices and how a preventative, systematic approach to healthcare can vastly improve outcomes for individuals with IDD. They discuss the concept of “diagnostic overshadowing,” where medical professionals might attribute symptoms solely to a disability rather than exploring underlying health issues. By encouraging more training and awareness among health practitioners, Mary and Dr. Escudé advocate for a future where IDD patients receive the comprehensive care they deserve. The episode also highlights Mary's work with the National Association of State Directors of Developmental Disabilities Services (NASDDDS). She explains how the organization provides invaluable federal-level advocacy, technical support, and guidance to help state agencies better serve their communities. Reflecting on the collaboration during the COVID-19 pandemic, Mary shares her belief in the power of partnerships and the importance of balancing dedication to work with personal well-being.

In this episode of the IDD Health Matters Podcast, Dr. Craig Escudé is joined by John Raffaele, Director of Educational Services at the National Alliance for Direct Support Professionals (NADSP), for a candid conversation about the evolving role of direct support professionals (DSPs) and their impact on the lives of people with intellectual and developmental disabilities (IDD). Recorded live from the NADSP Annual Conference in Pittsburgh, this episode dives deep into the unique challenges and responsibilities DSPs face and how the industry is working toward elevating their role from entry-level caretakers to respected professionals. John sheds light on NADSP's mission to redefine DSP training as meaningful development, focusing on professional growth rather than just compliance-based instruction. John also discusses the critical need for a standardized credentialing and certification system for DSPs—something he likens to a medical residency, providing DSPs with hands-on, guided experience rather than simply checking off boxes for required trainings. He emphasizes that DSPs are often left underprepared by traditional entry-level training models, which typically focus on emergency response rather than the nuanced daily support most individuals with IDD require. With over 1.5 million DSPs in the United States, the push for a more formalized development structure and recognition as a legitimate profession is a priority for NADSP, which actively works on advocacy and policy initiatives to achieve this goal.

In this episode of the IDD Health Matters Podcast, host Dr. Craig Escudé welcomes Valerie Bradley, a pioneer in the intellectual and developmental disabilities (IDD) field. Valerie is the president and co-founder of the Human Services Research Institute (HSRI), an organization dedicated to advancing policies and practices in human services. With over four decades of experience, Valerie has been at the forefront of deinstitutionalization efforts, working to move individuals with IDD from large institutions into more community-based, supportive environments. Her expertise and passion for improving the quality of life for individuals with disabilities have earned her a significant reputation in the field. During the conversation, Valerie reflects on the successes and ongoing challenges of deinstitutionalization, particularly the transition from large institutional settings to smaller community homes. While progress has been made in creating residential and employment supports, Valerie notes the initial missteps of replicating institutional models in smaller settings and the importance of fostering truly integrated community living. She also highlights the impact of the Centers for Medicare and Medicaid Services (CMS) Settings Rule, a landmark policy change that has advanced the rights of individuals with IDD to live more independent and self-directed lives. The discussion delves into broader systemic issues, including the workforce crisis in the caregiving profession and the need for enhanced training and support for Direct Support Professionals (DSPs). Valerie emphasizes the value of self-direction for individuals with IDD, enabling them to take control of their own care and use personalized budgets to hire staff. Her insights provide a long view of the field, tracing its evolution and underscoring the need for continued progress to ensure equitable healthcare and meaningful community inclusion for people with IDD.

In this episode of IDD Health Matters, host Dr. Craig Escudé is joined by Valerie Chadwick, the Health Advocacy Director at The Arc of Philadelphia. Valerie shares her journey into the field of healthcare for individuals with intellectual and developmental disabilities (IDD), highlighting her initial hesitance and eventual drive to become more engaged with this underserved population. Valerie talks about her role at The Arc, where she oversees a program that helps medical and health students interact with individuals with disabilities, fostering understanding and competence in providing inclusive care. Together, they discuss the importance of training healthcare professionals to meet the needs of people with IDD and the groundbreaking partnerships Valerie is building with medical and dental schools in Philadelphia. This episode is filled with powerful insights on the necessity of presuming competence, seeing individuals with disabilities in their full humanity, and making meaningful differences within your sphere of influence. Valerie also opens up about her personal dream of pursuing medical school and continuing her advocacy for people with disabilities throughout her career. Tune in to hear Valerie's inspiring story and learn more about how healthcare can evolve to be more inclusive for people with disabilities.

Join Dr. Craig Escudé on IDD Health Matters as he welcomes Dr. Kelly Nye-Lengerman, a seasoned social worker and the Director at the University of New Hampshire's Institute on Disability. In this episode, Dr. Nye-Lengerman delves into her work at the institute, focusing on increasing inclusion and belonging across the lifespan and experiences of disability. With a rich background in both direct support and academic leadership, she offers a unique perspective on the intersection of intellectual disability and mental health, emphasizing the importance of community-based support systems and professional education to improve the quality of life for people with disabilities. Dr. Nye-Lengerman shares the challenges and strategies involved in enhancing health equity through her involvement with the START National Training Institute, which aims to advance practices that support individuals and families in the most inclusive and equitable ways possible. This conference, enriched by contributions from people with lived experiences and community partners, showcases the significant progress being made in the field. The conversation also touches on the common misinterpretations of behavioral symptoms as mental health issues, highlighting the necessity of recognizing underlying medical conditions which can be treated to prevent unnecessary suffering. The episode concludes with a powerful discussion on the role of direct support professionals and the critical need for proper training and recognition of this workforce to achieve real inclusion and participation for people with intellectual and developmental disabilities. Dr. Nye-Lengerman's passionate advocacy for equitable health care and her belief in the transformative power of inclusive higher education shine through, offering valuable insights and inspiring listeners to consider the deep impact of educational and support systems in enhancing the lives of people with disabilities.

In this episode of IDD Health Matters, Dr. Craig Escudé is joined by Dr. Michelle Cantanzerite, Chief Medical Officer at Achievable Health, a federally qualified health center in Culver City, California. Together, they dive into Michelle's journey into the field of healthcare for individuals with intellectual and developmental disabilities (IDD). From a chance start to now leading a healthcare facility dedicated to improving the lives of individuals with IDD, Michelle reflects on the challenges and rewards of working in this specialized field, where communication and humility play crucial roles in delivering patient-centered care. Michelle highlights the unique mission of Achievable Health, emphasizing its integrated care approach, including medical services, behavioral health, and therapy. The clinic, although small, is growing rapidly and has recently received a significant grant from the Mackenzie Scott Foundation to expand its services. Michelle and Dr. Escudé discuss the importance of creating an accessible, welcoming environment for people with IDD, as well as the collaborative work with California's regional centers to ensure comprehensive care and support for patients with disabilities. Throughout their conversation, Michelle and Dr. Escudé explore key issues in healthcare for people with IDD, including the systemic discrimination patients often face and the lack of proper training among healthcare providers. They also delve into the broader need for healthcare professionals to approach care with humility and a willingness to learn, ensuring that individuals with IDD receive the compassionate, competent care they deserve. This insightful episode sheds light on the ongoing efforts to improve healthcare equity for people with IDD.

In this episode of IDD Health Matters, Dr. Craig Escude is joined by Dr. Toni Benton, a professor and medical director at the University of New Mexico's Family Medicine department. Together, they dive into the complexities of healthcare for individuals with intellectual and developmental disabilities. Dr. Benton shares insights about her work with the Transdisciplinary Evaluation and Support (TES) Clinic, a program that's been providing innovative, community-based care for over 30 years. Dr. Benton explains how her team, which includes medical professionals, social workers, and various specialists, provides comprehensive evaluations for individuals across New Mexico. The TES Clinic addresses complex medical, behavioral, and psychosocial challenges, working closely with families and care teams to find effective solutions. Through thoughtful case studies and examples, Dr. Benton emphasizes the importance of collaborative, interdisciplinary healthcare, highlighting how their evaluations have transformed lives. Listeners will also hear about the clinic's capacity-building efforts, where Dr. Benton's team teaches and supports local clinicians to ensure long-term care improvements. Dr. Benton offers practical tips for professionals working with individuals who cannot communicate verbally, stressing the importance of listening with more than just ears and recognizing subtle signs during physical exams. Tune in for a deep dive into this unique model of care and discover how collaboration and dedication can enhance health outcomes for people with IDD.

In this episode of *IDD Health Matters*, Dr. Craig Escudé welcomes Ann Hardiman, Chief Innovation Officer at the New York Alliance for Inclusion and Innovation. Ann shares her journey into the field of intellectual and developmental disabilities (IDD), which was shaped by personal experiences with mental health in her family. The discussion begins with Ann's involvement during the early days of deinstitutionalization, when people with IDD were transitioning from institutional settings to community-based living. Ann reflects on the significant improvements in quality of life that resulted from this movement, as well as the challenges that persist, particularly in the realm of healthcare access and social inclusion. The conversation delves into the critical need for improved healthcare services for people with IDD, with Ann highlighting the disparities in medical care that individuals face in both institutional and community settings. She discusses issues like inadequate dental care, polypharmacy, and the lack of training among healthcare providers to address the unique needs of this population. Ann and Dr. Escudé explore how these challenges can be overcome through better training for clinicians and more person-centered approaches to healthcare, ensuring that people with IDD receive the care they deserve. Ann also shares exciting initiatives underway at the New York Alliance, including a new executive leadership development program aimed at building future leaders in the field of disability services. She emphasizes the importance of fostering a strong, value-driven network of professionals who are committed to inclusion, diversity, and innovation. Throughout the episode, Ann underscores the power of relationships and advocacy, encouraging listeners to share their stories and continue pushing for greater acceptance and equity for people with disabilities.

Dr. Carl Tyler is a leading figure in the field of healthcare for individuals with intellectual and developmental disabilities (IDD). He is the current president of the American Academy of Developmental Medicine and Dentistry (AADMD), an organization dedicated to improving healthcare for people with IDD through education, advocacy, and policy efforts. Dr. Tyler is also a professor of family medicine at the Cleveland Clinic, where he plays a key role in training healthcare providers, including residents, on how to care for individuals with IDD. His career began during the deinstitutionalization movement in Ohio, and over time, he became a strong advocate for improving healthcare systems and training physicians to meet the specific needs of this population. Dr. Tyler's work includes research, scholarship, and contributions to medical literature, and he has helped integrate specialized care for individuals with IDD into mainstream medical training programs. In addition to his clinical and educational work, Dr. Tyler has authored several key resources, including the book Intellectual Disability at Your Fingertips, which provides practical guidance for healthcare providers working with this population.

Welcome to another insightful episode of the IDD Health Matters Podcast with Dr. Craig Escude. In this episode, Dr. Escude is joined by two remarkable guests, Nanette Wrobel and Jessica Jacobs from Tarrytown Expocare Pharmacy, a leading provider of pharmacy services for individuals with intellectual and developmental disabilities (IDD). Nanette, a seasoned pharmacist with nearly 40 years of experience, and Jessica, a pharmacy technician with a strong background in mental health and IDD, share their unique journeys into the IDD field. They discuss the critical role that specialized pharmacy services play in supporting individuals with IDD, emphasizing the importance of tailored medication management and the need for continuous education for healthcare providers. Throughout the conversation, Dr. Escude and his guests delve into the nuances of medication management for people with IDD, including the challenges of recognizing and addressing non-verbal communication of symptoms and side effects. They also explore the broader implications of health equity in this field, highlighting the progress made and the ongoing need for collaboration among healthcare professionals to improve the quality of care. Tune in to hear inspiring stories, practical advice, and a deep dive into the collaborative efforts required to enhance the lives of individuals with IDD. Whether you're a healthcare professional, caregiver, or advocate, this episode is packed with valuable insights that can help you make a positive impact in the IDD community. Don't miss the "Three in Three" segment, where Jessica and Nanette offer actionable tips for improving health and wellness for people with IDD, emphasizing the power of education, volunteerism, and an open-minded approach to learning. Join us for this enlightening discussion that reinforces the importance of compassionate care and continuous learning in the IDD field.

Join Dr. Craig Escude in this insightful episode of IDD Health Matters, recorded live from the ANCOR conference in Chicago. In this episode, Dr. Escude welcomes Catherine Thibedeau, who shares her remarkable journey from entering the field of supports and services for people with intellectual and developmental disabilities (IDD) by necessity, to becoming the executive director of Independence Advocates of Maine. Catherine discusses the array of services her agency provides and highlights her dual role in influencing policy and professional development through state and national provider networks. Catherine's story illustrates the career opportunities within the IDD service field, emphasizing the potential for rapid advancement and professional growth. Additionally, she dives into the innovative health initiatives her organization is pioneering, such as the use of telemedicine to improve accessibility and quality of care for people with IDD, especially in rural settings. Listeners will gain valuable insights into the importance of inclusive hiring practices and the transformative impact of thoughtful, person-centered caregiving. Whether you're a provider, a caregiver, or someone interested in the field of IDD services, this episode is packed with inspiring stories and practical advice for fostering health equity and empowering individuals with disabilities. Tune in to learn how engaging with and supporting the IDD community can enrich lives and enhance the quality of care across the board.

In this episode of IDD Health Matters, Dr. Craig Escudé sits down with Art Dykstra, a veteran in the field of intellectual and developmental disabilities (IDD). Art, who currently serves as the director of the Trinity Foundation and has previously led Trinity Services as CEO, shares his inspiring journey from an unexpected start in the IDD field to becoming a pivotal figure in providing support and resources for individuals with disabilities across Illinois. Art's story begins with a simple job posting that led him to work with a young man with autism, a transformative experience that steered him from philosophy to psychology and ultimately into a lifelong commitment to the IDD community. Throughout the conversation, Art reflects on the importance of making a difference in people's lives and how his early experiences shaped his career. His insights into the challenges and rewards of working in this field provide a deep understanding of the complexities and the profound impact one can have on individuals and their families. Dr. Escudé and Art discuss the vital role of interdisciplinary collaboration in supporting individuals with IDD, emphasizing the need for integrating mental and physical health care. They also explore the concepts of happiness and joy, the importance of self-awareness, and the value of serving others. Art's dedication to improving the lives of those with IDD is a testament to the power of compassion and commitment, offering valuable lessons for anyone interested in making a difference in this field. Tune in for a heartfelt and enlightening conversation that underscores the profound impact of dedicated service in the lives of others.  

In this insightful episode of the IDD Health Matters Podcast, Dr. Craig Escude sits down with Karyn Harvey, a passionate advocate for trauma-informed care in the field of intellectual and developmental disabilities (IDD). Recorded live from the ANCOR conference, Karyn shares her deep understanding of the behavioral challenges often faced by individuals with IDD, revealing how these behaviors are frequently symptoms of unrecognized trauma, such as post-traumatic stress disorder (PTSD). Karyn discusses the critical need for access to therapeutic support for those with IDD, emphasizing the profound impact of trauma on their mental health. She delves into the three essential components of trauma-informed support: emotional safety, connection through meaningful relationships, and empowerment. Through her years of experience, Karyn highlights the vital role that direct support professionals (DSPs) play in the healing and growth of individuals with IDD, stressing that the most significant transformations occur when DSPs are compassionate, understanding, and supportive. Tune in to hear Karyn's inspiring stories, learn about her latest book "Trauma and Healing," and discover practical strategies for creating environments where individuals with IDD can thrive. This episode is a must-listen for anyone interested in health equity, trauma-informed care, and making a lasting difference in the lives of those with intellectual and developmental disabilities. About Karyn: Karyn Harvey, PhD, is a well-respected psychologist and expert in the field of intellectual and developmental disabilities (IDD), particularly known for her work on trauma-informed care. She has spent over three decades working with individuals with IDD, focusing on mental health, behavioral interventions, and therapeutic support. Dr. Harvey is a passionate advocate for recognizing and addressing the trauma experienced by people with IDD, which is often overlooked or misunderstood. She is the author of several books, including "Trauma-Informed Behavioral Interventions" and "Trauma and Healing," which provide valuable resources for caregivers, direct support professionals, and others working in the IDD field. Her work emphasizes the importance of creating safe, connected, and empowering environments for individuals with IDD to help them heal and thrive. Dr. Harvey is also a frequent speaker at conferences and a sought-after expert in the area of mental health and trauma for people with intellectual and developmental disabilities. 

In this episode of the IDD Health Matters Podcast, Dr. Craig Escude sits down with Meera Gandhi, the dedicated Clinic Director at Kramer Davis Health Clinic in Nashville. Meera shares her inspiring journey, from coaching Special Olympics athletes in California to becoming a passionate advocate and leader in healthcare for people with intellectual and developmental disabilities (IDD). She discusses how her early experiences shaped her career and led her to Kramer Davis Health, where she now plays a pivotal role in providing comprehensive care. Dr. Escude and Meera delve into the unique, holistic approach of Kramer Davis Health, emphasizing integrated care that brings together medical, dental, therapeutic, and psychological services under one roof. Meera explains how this model is transforming medicine, especially for IDD patients who often face significant challenges in traditional healthcare settings. They highlight the importance of transdisciplinary care and the benefits of having all specialists collaborate closely to address the complex needs of their patients. Meera also shares her insights on the critical need for better training and awareness among clinicians regarding IDD healthcare. She discusses the initiatives at Kramer Davis Health to educate and train future healthcare providers, ensuring that more clinicians are equipped to deliver high-quality care to this underserved population. Tune in to hear how Meera and her team are making a significant impact on the lives of IDD patients and their families, and learn about the future goals of Kramer Davis Health in revolutionizing care for people with intellectual and developmental disabilities.

In this insightful episode of the IDD Health Matters Podcast, hosted by Dr. Craig Escude, we welcome Dr. Steven Merahn, Medical Director at Partnership Solutions, to discuss the crucial aspects of healthcare and support services for people with intellectual and developmental disabilities (IDD). Dr. Merahn shares his journey from medical school at Albert Einstein College of Medicine to his current role, highlighting the pivotal moments that shaped his dedication to this field. Dr. Merahn delves into the significance of understanding diversity of ability rather than viewing it as a disability, stressing the importance of adapting environments to support individuals' unique needs. He shares experiences from his time working with the New York City Health Department and the ID community, advocating for a holistic, person-centered approach to healthcare. Listeners will gain valuable insights into the challenges and triumphs of integrating healthcare with support services, the importance of coordinated care, and the impact of social determinants on health outcomes. Dr. Merahn also discusses his book, "Care Evolution," which explores health as a social imperative, emphasizing the need for a societal commitment to health similar to that of education and law enforcement. Join us for an enlightening conversation that underscores the necessity of removing barriers and fostering an inclusive environment for people with IDD. Discover practical steps you can take to contribute to improving healthcare and support for this community.

Join Dr. Craig Escude in this insightful episode of IDD Health Matters, where we explore health, wellness, and health equity for individuals with intellectual and developmental disabilities (IDD). Our special guest, Natalie Symons, a dedicated registered nurse and the director of the Milestone Health Care Quality Unit (HCQU) in Western Pennsylvania, shares her extensive experience and innovative approaches to supporting individuals with IDD. In this episode, Natalie discusses her role in providing training and technical assistance to agencies across nine counties in Pennsylvania. She highlights the critical work her team does, including offering over 250 medical and behavioral training topics, providing free technical assistance, and developing a new DSP app to support direct support professionals and family members. Natalie also shares their innovative use of virtual reality for training, which enhances learning retention and provides a safe environment for making mistakes. Additionally, Natalie recounts her journey into the field of IDD health care, emphasizing the importance of listening to and advocating for individuals with IDD. She shares valuable advice on increasing activity, paying attention to subtle health cues, and the rewarding nature of working with this community. Tune in to learn about the innovative tools and practices that are making a difference in the lives of individuals with IDD, and be inspired by Natalie's passion and dedication to this vital field. Three Key Takeaways: Increase activity levels for individuals with IDD to improve overall health. Listen attentively and observe carefully to understand and address health needs. Embrace the rewarding nature of working with individuals with IDD and advocate tirelessly on their behalf. For more information on Milestone HCQU, visit Milestone PA and explore the DSP app and other resources. Listen now on your favorite podcast platform!

Welcome to another episode of the IDD Health Matters Podcast with Dr. Craig Escudé. In this episode, Dr. Escudé is joined by Terry Broda, a seasoned nurse consultant with over 30 years of experience in the field of intellectual and developmental disabilities (IDD). Terry shares her unique journey into the field, which began unexpectedly and evolved into a lifelong passion. Together, they delve into critical topics such as health equity, the importance of understanding medical issues like constipation and seizures, and the vital role of proper diagnosis in improving the quality of life for individuals with IDD. Terry's extensive background in psychiatry, neurology, and her work with First Nations communities provide rich insights and compelling stories that highlight the nuances of healthcare for people with IDD. Listen in as they discuss the necessity of educating clinicians and supporters, the impact of medical comorbidities on behavior, and the importance of recognizing and treating underlying health issues. Terry also shares actionable steps that listeners can take to support this field, emphasizing the need for greater exposure, acceptance, and resource accessibility. This episode is a must-listen for anyone involved in or interested in the health and wellness of individuals with intellectual and developmental disabilities. Tune in to gain valuable knowledge and inspiration from Terry Broda's extensive experience and dedication to this important work. Join us for an enlightening conversation on the IDD Health Matters Podcast!

In this episode of IDD Health Matters, Dr. Craig Escude is joined by Elizabeth Martin, the CEO of Living Resources, recorded live at the New York Alliance for Inclusion and Innovation annual conference. Elizabeth shares her experiences and insights since joining Living Resources in September 2020, navigating the challenges of the pandemic and her transition from working with physical disabilities to intellectual and developmental disabilities (IDD). Elizabeth details the wide array of services offered by Living Resources, an organization with nearly 50 years of history in empowering individuals with disabilities. She highlights their residential programs, day programs, community habilitation, employment services, self-direction, and innovative college programs in partnership with several institutions. A significant portion of the conversation focuses on the pressing issue of workforce shortages in the field and how Living Resources strives to provide a fulfilling career for its staff despite financial challenges. Elizabeth emphasizes the importance of health and wellness, discussing their comprehensive nursing and clinical services, including Dialectical Behavioral Therapy (DBT). Elizabeth also shares the organization's efforts to foster greater independence and control for individuals with disabilities through a citizenship approach, person-centered support, and assistive technology. She concludes the episode with three pieces of advice for listeners: question the status quo, navigate regulations creatively, and maintain hope and optimism in the face of challenges. Join Dr. Craig Escude and Elizabeth Martin as they delve into the intricacies of providing high-quality services and support for people with intellectual and developmental disabilities, sharing valuable insights and strategies for overcoming common obstacles in the field. Key Takeaways: Insights into the diverse services provided by Living Resources. Discussion on workforce shortages and the importance of creating fulfilling career opportunities. Emphasis on comprehensive health and wellness support, including nursing and DBT. Innovative approaches to enhancing independence and control for individuals with disabilities. Three pieces of advice for professionals in the field: question established practices, creatively navigate regulations, and maintain hope and optimism. Tune in to gain a deeper understanding of the challenges and innovations in the field of disability services from an experienced leader dedicated to making a difference.

Welcome to another episode of the IDD Health Matters Podcast, hosted by Dr. Craig Escude. In this episode, Dr. Escude talks with Eric Pines, Esq., a nationally recognized federal employment lawyer, mediator, and attorney business coach. Eric discusses his work in advocating for reasonable accommodations for federal employees, particularly veterans, and those with disabilities. Eric Pines provides insights into his legal practice, emphasizing the importance of understanding and asserting one's rights under laws such as the Americans with Disabilities Act (ADA) and the Rehabilitation Act. He shares real-world examples, including helping veterans with PTSD secure work-from-home arrangements and assisting a federal employee with epilepsy by having the government build a special workspace. Eric's credentials are impressive. He represents federal employees and acts as in-house counsel for over fifty thousand federal employees through his work as a federal employee labor union representative. A former federal employee himself, Eric began his federal employment law career as in-house counsel for AFGE Local 1923, located at the Social Security Administration's headquarters and known as the largest federal union local in the world. He presently serves as AFGE 1923's Chief Counsel, as well as in-house counsel for all FEMA bargaining unit employees and numerous Department of Defense and Veteran Affairs unions. The conversation highlights the critical role of accommodations in the workplace and the challenges faced by individuals with disabilities in securing these accommodations. Eric underscores the significance of being well-informed about one's legal rights and the resources available to assist in obtaining necessary accommodations. For those seeking more information, Eric recommends the Job Accommodation Network (JAN) at askjan.org, which offers creative solutions and comprehensive guides on accommodations. He also points to his website, Pines Federal (pinesfederal.com), which features a wealth of resources, blogs, and case studies on disability accommodations. Eric's passion extends to his own podcast, "Disability Inclusion and Accommodation in the Workplace," where he discusses innovative accommodation solutions and shares stories of individuals who have thrived despite their disabilities. This podcast is available on major platforms like Spotify and Apple Podcasts. As the episode concludes, Eric encourages listeners to assert their rights and pursue accommodations confidently, reminding them that the law is often on their side when it comes to ensuring equitable treatment in the workplace. This episode is a valuable resource for anyone interested in disability rights and workplace accommodations, offering practical advice and inspiring stories of advocacy and resilience.

Welcome to "IDD Health Matters," the podcast dedicated to exploring health, wellness, and health equity for individuals with intellectual and developmental disabilities. Hosted by Dr. Craig Escude, each episode delves into the unique challenges and innovative solutions within this specialized field of healthcare. In this episode, Dr. Escude takes a road trip to Hermitage, just outside of Nashville, to visit Dr. Matt Holder, the driving force behind Kramer Davis Health. Dr. Holder shares his journey from the Lee Specialty Clinic in Louisville, Kentucky, to establishing Kramer Davis Health, a pioneering transdisciplinary outpatient healthcare center dedicated to adults with intellectual and developmental disabilities. They discuss the comprehensive services offered, including medical, dental, physical therapy, speech therapy, psychiatric care, and behavioral analysis, all coordinated under one roof for optimal patient care. Dr. Holder emphasizes the importance of personalized, patient-centered care, recounts inspiring patient stories, and shares insights into the complexities of healthcare systems and insurance challenges. This episode provides a deep dive into the innovative approaches that are transforming healthcare for individuals with IDD. Join Dr. Escude and Dr. Holder as they discuss the mission, challenges, and successes of Kramer Davis Health, and explore the future of inclusive healthcare. Tune in for an inspiring and informative conversation that highlights the importance of compassion, creativity, and advocacy in improving health outcomes for people with intellectual and developmental disabilities.

Welcome to another insightful episode of the IDD Health Matters Podcast, hosted by Dr. Craig Escude. In this episode, we delve into the critical aspects of health, wellness, and equity for individuals with intellectual and developmental disabilities (IDD). Our special guest, Ernest "Ernie" McNutt, joins us from the New York Alliance for Inclusion and Innovation, where he plays a pivotal role in care coordination for people with IDD. Ernie shares his journey into the field, which began during his college days working in a group home. He discusses the evolution of care coordination organizations (CCOs) in New York State, established in 2018, which aim to provide holistic care management. These organizations serve as independent advocates for individuals with IDD, helping them access necessary services and integrate into their communities. Ernie elaborates on the role of care managers in developing personalized life plans that address the unique needs and desires of each individual. He emphasizes the importance of viewing people with disabilities not just through the lens of their disabilities but as individuals with unique differences and abilities. Through stories of successful interventions and personal growth, Ernie highlights the transformative impact of dedicated care and support. Dr. Escude and Ernie also discuss the broader implications of this work, including the importance of volunteering and fostering a more inclusive society. They encourage listeners to see beyond disabilities and recognize the rich contributions that individuals with IDD can make to their communities. Tune in to learn more about the vital work being done to support people with IDD and the ongoing efforts to promote health equity and inclusion. Whether you're a professional in the field, a family member, or simply interested in making a difference, this episode offers valuable insights and inspiration.

Join Dr. Craig Escude on this enlightening episode of "ID Health Matters," where we delve into health, wellness, and health equity for individuals with intellectual and developmental disabilities. In today's episode, we are thrilled to welcome Dr. Harold Reitman, affectionately known as "Hackie," joining us from Fort Lauderdale, Florida. Dr. Reitman shares his inspiring journey from a young aspiring doctor in Jersey City to becoming a renowned orthopedic surgeon and an advocate for neurodiversity. Listen as Hackie recounts his unique path through medical school, his unexpected venture into the world of boxing as a Golden Gloves champion, and his profound personal experiences that led him to work in the field of neurodiversity. Discover the origins and mission of DifferentBrains.org, a non-profit organization dedicated to fostering understanding and inclusion for people with neurological differences. Dr. Reitman's story is not just about overcoming the odds; it's a passionate call for empathy, understanding, and the celebration of individual strengths in a diverse world. 

Welcome to the IDD Health Matters Podcast with Dr. Craig Escude, where we explore health, wellness, and health equity for individuals with intellectual and developmental disabilities (IDD). In this episode, Dr. Escude hosts Lorene Reagan, a seasoned professional with 40 years of experience in IDD nursing. Lorene shares her journey into the field, which began by chance in 1984 when she took a job at a school for children with IDD. She describes her diverse career, from clinical nursing and working in group homes to serving as the Nurse Coordinator for the New Hampshire Department of Health and Human Services. Her extensive experience includes administrative roles, working with the New Hampshire Board of Nursing, and consulting for a National Medicaid firm. Currently, she contributes her vast knowledge and expertise at IntellectAbility. The conversation delves into the significant challenges in achieving health equity for people with IDD. Lorene and Dr. Escude discuss issues such as the lack of preventive care, untreated chronic conditions, and systemic barriers that contribute to these health disparities. Despite these challenges, they also highlight positive changes, such as the shift from institutional to community-based support systems and the increased focus on health equity by national and international organizations. Lorene emphasizes the importance of education and the evolving role of developmental disabilities nurses. She encourages nurses to get involved with professional organizations like the Developmental Disabilities Nurses Association (DDNA) and to stay informed about the latest clinical practice guidelines. In a segment called "Three in Three," Lorene offers three actionable suggestions for improving health care for people with IDD: Get to know individuals with IDD and their families to better advocate for their healthcare needs. Become involved in interdisciplinary teams and support the broader community of IDD healthcare professionals. Stay updated with the most current clinical practice guidelines to provide the best care possible. Join Dr. Escude and Lorene Reagan for an insightful discussion filled with valuable advice, personal anecdotes, and a shared passion for improving health equity for individuals with intellectual and developmental disabilities.  

In this episode of IDD Health Matters, host Dr. Craig Escude is joined by Adam White from TruFit, a company dedicated to creating adaptive health and wellness solutions for individuals with intellectual, developmental, and physical disabilities. Adam discusses the innovative TruFit app, which customizes exercise programs and activities based on individual needs, offering a holistic approach to health that includes physical fitness, emotional wellness, life skills training, and nutrition. The conversation covers TruFit's pilot programs in schools and collaborations with nonprofit organizations, assisted living homes, and therapy providers, aiming to enhance the overall well-being of people with disabilities. Adam shares insights on the importance of proactive health measures and the need for advocacy and recognition for the disabled community. Tune in to learn more about TruFit's mission to make health and wellness accessible and effective for everyone.