POPULARITY
6 episodes with profound autism
9 episodes with profound autism
4 episodes with profound autism
5 episodes with profound autism
2 episodes with profound autism
2 episodes with profound autism
2 episodes with profound autism
2 episodes with profound autism
2 episodes with profound autism
Brandon Franklin returns to the podcast after a very long hiatus. You'll have to go back to Session 36 to hear his first appearance as a matter of fact. It turns out that he's been doing a lot of innovative clinical work in that time. Currently, he is the Chief Behavior Analyst for the Lee Specialty Clinic and a Behavioral Consultant at Kramer Behavioral Health. In these roles, Brandon has implemented various interventions to help individuals with intellectual disabilities access routine medical and dental care. If you're not familiar with this topic, it might sound pretty mundane, but as you'll hear, these populations really struggle to attend and participate in routine medical appointments, which, not surprisingly, has downstream negative health consequences. As such, interventions that improve on the current statistics can truly be considered life-saving. In this podcast, we get into the following: Common phobias associated with medical treatments. Brandon's personal experience with aerophobia (the fear of flying), and what he did to improve it. The basics of desensitization strategies. How he and his team members use these strategies to improve the rate of successful medical appointment visits. And finally, the research on this topic that he is doing for his dissertation. Brandon has generously compiled a list of references, which you can find here. He's passionate about this topic and is willing to talk with anyone about it, so feel free to hit him up on LinkedIn. Here's all of Brandon's contact info. Here's all the desensitization resources you could ask for. This podcast is brought to you by: Frontera. Consider taking a demo of Frontera's Assessment Builder and see how the ethical application of AI technologies can help you serve clients and save you time! Your first assessment report is free. And if you use code BOP25 you'll get an additional five assessments for just $100. So head to fronterahealth.com to check it out! The Profound Autism Summit. The Profound Autism Summit is a two-day conference taking place on April 10th and 11th in Boston, MA. Following on the massive success of the 2024 Summit, the 2025 event brings together leaders from the areas of research, medicine, treatment, advocacy, and education to discuss the needs and support of those with Profound Autism across disciplines and throughout the lifespan. HRIC Recruting. Cut out the middleman and speak directly with Barbara Voss, who's been placing BCBAs in great jobs all across the US for 15 years. CEUs from Behavioral Observations. Learn from your favorite podcast guests while you're commuting, walking the dog, or whatever else you do while listening to podcasts. New events are being added all the time, so check them out here. The Behavioral Toolbox. Check out our courses for school-based and other behavioral professionals, including our newest one, Motivational Interviewing: Getting Educator Buy-In.
An episode that dives deep on the truth about autism. Here's what's in store for today's episode: * In today's episode, Matt and Angela dive into the controversial discussion surrounding "profound autism."* It turns out that "profound autism" isn't a clinical term, but rather a label used by the ABA industry to restrict the number of autistic advocates who can speak for themselves.* Calling it "profound autism" is more profitable than saying "level 3 autism" because it creates a sense of urgency, making it easier for the ABA industry to secure funding and promote more intervention-based services.* In this episode, we explore the connection between giftedness and autism, and how gifted individuals face higher rates of addiction and substance abuse.* The autism levels are directly tied to capitalism—how much money you can make often depends on how well you can mask your symptoms.* Our hosts also discuss how terms like "indigo children" and "highly sensitive persons (HSPs)" are often just euphemisms for being autistic.* Then, we dive into the ABA industry, the issues with Autism Speaks, and the impact of helicopter autism parents who prevent their children from learning and growing.* We also talk about autistic pattern recognition and how it can sometimes feel like we're psychic, picking up on details others might miss.* Matt and Angela discuss how pattern recognition can also serve as a survival skill, and how burnout manifests in everyone who is autistic.* We elaborate on how autistic individuals can be more prone to substance abuse, often as a way to cope with sensory overload, social challenges, or unmet needs.* Then, we dive into the concept of being a functional alcoholic and explore the connection between substance abuse and giftedness.* We discuss Dan Harmon, creator of Rick and Morty, and how his autistic burnout led to struggles with alcoholism and missed deadlines.* Finally, we explore reframing autism in terms of "masking levels" rather than outdated "functioning" labels.“What people don't understand is that, when it comes to the autism, we just have the autism. It might have some comorbid characteristics with other stuff - for instance, ‘profound autism' might have some intellectual disability. But it doesn't change the nature of the autism, it just changes the operating system that you're working with. It changes the hardware that you're working with.” - Matt“The autism is the autism. It is the hyper-connected brain. It is the hyper-connected brain. It is the genetic underpinning that changes everything about us.” - Matt“You could be gifted, but God forbid the word ‘autistic' with no qualifiers just comes out of your mouth. I don't know what happens. I think God throws Zeus a bolt of lightning. Something must happen.” - Angela“I have had periods in my life where I actually thought I must be psychic because these things would happen. I'd be like, ‘my god, I think I'm psychic. And then I realized, ‘shit, I'm just pattern matching.” - AngelaDid you enjoy this episode? We explored the controversial label of "profound autism" and how it's used to limit autistic self-advocacy. We also dove into the connection between giftedness and substance abuse, the role of pattern recognition as a survival skill, and the cycle of burnout and underemployment in the autistic community. Plus, we break down the issues with Autism Speaks, the ABA industry, and helicopter autism parents. Tune in and share your thoughts using #AutisticCultureCatch!Show Notes:Harmontown Movie - Related Episodes:Sherlock is AutisticCommunity is AutisticFollow us on InstagramFind us on Apple Podcasts and SpotifyLearn more about Matt at Matt Lowry, LPPJoin Matt's Autistic Connections Facebook GroupLearn more about Angela at AngelaKingdon.com Angela's social media: Twitter and TikTokOur Autism-affirming merch shop This is a public episode. If you'd like to discuss this with other subscribers or get access to bonus episodes, visit www.autisticculturepodcast.com/subscribe
Drs. Ilene Schwartz and Beth Kelly joined me to discuss the never ending conundrum of navigating ethical dilemmas. As Ilene points out in the podcast, most people know right from wrong, but the types of dilemmas BCBAs encounter are what she calls 'right vs. right' dilemmas... Therefore, ethical practice requires a continuous decision making process. And in my guests' view, this is not a matter of decontextualized rule-following. In this podcast, we get into these nuances, using Ilene and Beth's newly published book, Ethical Decision Making in Applied Behavior Analysis. We also discussed a framework for articulating one's values and principles that you might find helpful in your work setting. Resources for this podcast: Ethical Decision Making in Applied Behavior Analysis. Rosenberg and Scwhartz (2018). Guidance or Compliance: What Makes an Ethical Behavior Analyst? Kelly, Greeny, Rosenberg and Schwartz (2020). When Rules Are Not Enough: Developing Principles to Guide Ethical Conduct. Dr. Schwartz's faculty page. Dr. Kelly's faculty page. BOP's CEUs, with many Ethics events. This podcast is brought to you with the support of: The Profound Autism Summit. The Profound Autism Summit is a two-day conference taking place on April 10th and 11th in Boston, MA. Following on the massive success of the 2024 Summit, the 2025 event brings together leaders from the areas of research, medicine, treatment, advocacy, and education to discuss the needs and support of those with Profound Autism across disciplines and throughout the lifespan. CEUs from Behavioral Observations. Learn from your favorite podcast guests while you're commuting, walking the dog, or whatever else you do while listening to podcasts. New events are being added all the time, so check them out here. The Behavioral Toolbox. Check out our courses for school-based and other behavioral professionals, including our newest one, Motivational Interviewing: Getting Educator Buy-In. The Verbal Behavior Conference. Whether you attend in-person in Austin, TX, or online via BehaviorLive, you're going to love this year's Verbal Behavior Conference! Click here to get all the details! Behavior University. Their mission is to provide university quality professional development for the busy Behavior Analyst. Learn about their CEU offerings, including their 8-hour Supervision Course, as well as their RBT offerings over at behavioruniversity.com/observations. Don't forget to use the coupon code, PODCAST to save at checkout!
Many years ago, a wise principal once told me that good instruction is the best classroom management tool teachers have at their disposal. In Session 293, Dr. Todd Haydon joins me to discuss the practice of increasing the rate of students' opportunities to respond (OTR), which is an instructional practice that has been shown to improve classroom behavior. In doing so, Todd and I did a deep dive on his dissertation work, which culminated in the study, Haydon, Mancil, and Van Loan (2009). This study began with a referral to help students who engaged in disruptive and off-task behaviors. Rather than conduct several individual FBAs, Todd and his colleagues coached the teacher to increase the rate of posing academic questions to the class. The results spoke for themselves, and the rest is history. So tune in to learn how this practice works, and maybe it can be something that will help you in your practice! Oh, and by the way, he concludes the podcast with a very memorable story, so be sure to tune into the entire episode! Resourced discussed in this podcast: Today's ABA (Hanley, Session 160, CEU Available). How to Improve Classroom Management with the Good Behavior Game (Donaldson, Session 171, CEU Available). Pat Friman, No such thing as a bad boy (Inside JABA 7, CEU Available). Deconstructing Compassionate ABA (Hanley, Session 183, CEU Available). How to Use Group Responding (Heward, Session 260, CEU Available). Clinical Interviewing book (How to get "permission" to give advice). Classroom improvement courses from The Behavioral Toolbox. Using Opportunities to Respond in a General Education Classroom: A Case Study (Haydon, Mancil and Van Loan, 2009). Managing Negative Countertransference when Working with Children Exhibiting Externalized Behaviors: A Single-Case Design (Guest et al., 2025). Key and Peele substitute teacher skit. Remedial and Special Education. Tootling: current research and future considerations for school practitioners (Whitefield and Harry, 2024). PAX: The Good Behavior Game. Todd's Research Gate page. Numbered Heads Together. Todd's UC Faculty Page. This podcast is brought to you with the support of: Frontera. Consider taking a demo of Frontera's Assessment Builder and see how the ethical application of AI technologies can help you serve clients and save you time! Your first assessment report is free. And if you use code BOP25 you'll get an additional five assessments for just $100. So head to fronterahealth.com to check it out! The Profound Autism Summit. The Profound Autism Summit is a two-day conference taking place on April 10th and 11th in Boston, MA. Following on the massive success of the 2024 Summit, the 2025 event brings together leaders from the areas of research, medicine, treatment, advocacy, and education to discuss the needs and support of those with Profound Autism across disciplines and throughout the lifespan. HRIC Recruting. Cut out the middleman and speak directly with Barbara Voss, who's been placing BCBAs in great jobs all across the US for 15 years. CEUs from Behavioral Observations. Learn from your favorite podcast guests while you're commuting, walking the dog, or whatever else you do while listening to podcasts. New events are being added all the time, so check them out here. The Behavioral Toolbox. Check out our courses for school-based and other behavioral professionals, including our newest one, Motivational Interviewing: Getting Educator Buy-In. The Verbal Behavior Conference. Whether you attend in-person in Austin, TX, or online via BehaviorLive, you're going to love this year's Verbal Behavior Conference! Click here to get all the details!
Welcome to Session 290 of The Behavioral Observations Podcast. In this episode, I'm joined by Armando Bernal and Andy Bondy. Andy is a known entity both in the field, and to the audience as well, and therefore needs little in the way of introduction. Armando is the founder of Autism International Consulting, which is the only Autistic-owned ABA provider in the Houston, TX area. He shares a truly inspiring story of how he went from not speaking at all, up through the present day, where he and his team provide ABA services. In this show, we discuss: Armando's family's response to his diagnosis. How his mother single-handedly directed his early treatment. His work as a special education teacher. A surprising story - to me at least - of how he first learned about ABA. His work at Autism International Consulting. How he and Andy began collaborating. How Armando's unique perspective informs his practice. Current topics in ABA, including assent and compassionate care. How Armando learned to accept his diagnosis. Navigating controversies in the field and the related role of social media. Links to resources discussed: Armando's company, Autism International Consulting. Reach out to Armando on LinkedIn. Autism International Consulting's IG account. Lestremau Allen, Mellon, Syed, Johnson & Bernal (2024). Neurodiversity-Affirming Applied Behavior Analysis. Armando's appearance on Dr. Mary Barbera's podcast. This podcast is brought to you with the support of: The Profound Autism Summit. The Profound Autism Summit is a two-day conference taking place on April 10th and 11th in Boston, MA. Following on the massive success of the 2024 Summit, the 2025 event brings together leaders from the areas of research, medicine, treatment, advocacy, and education to discuss the needs and support of those with Profound Autism across disciplines and throughout the lifespan. HRIC Recruting. Cut out the middleman and speak directly with Barbara Voss, who's been placing BCBAs in great jobs all across the US for 15 years. CEUs from Behavioral Observations. Learn from your favorite podcast guests while you're commuting, walking the dog, or whatever else you do while listening to podcasts. New events are being added all the time, so check them out here. The Behavioral Toolbox. Check out our courses for school-based and other behavioral professionals, including our newest one, Motivational Interviewing: Getting Educator Buy-In. The Verbal Behavior Conference. Whether you attend in-person in Austin, TX, or online via BehaviorLive, you're going to love this year's Verbal Behavior Conference! Click here to get all the details!
Send us a textWhat does it mean to truly support special needs families, and how can we as a community come together to offer that support? In our latest episode, we bring you a heartfelt conversation with John Fela, a dedicated advocate who has turned his personal journey as a parent of a nonverbal autistic son into a powerful mission working with Joni and Friends, a global Christian disability ministry. John's inspiring story of creating a support group for special needs dads not only highlights the importance of community but also reveals the transformative power of shared experiences. Join us as we promise to open your eyes to the resilience and hope that emerge when families navigate the complexities of autism together.Navigating the world of special needs parenting comes with its unique set of challenges and victories, especially for single parents. Drawing from real-life experiences, we share stories of overcoming fears and breaking through isolation by building connections with other parents and community organizations. Schools, churches, and local groups all play pivotal roles in this journey, offering vital support from early childhood into adolescence and beyond. We explore how preparing for guardianship and continuously adapting to the needs of the autistic community requires a deep understanding and unwavering commitment to inclusion.Churches have a unique opportunity to foster genuine acceptance for families and individuals with disabilities, moving beyond surface-level inclusion. John Fela shares invaluable insights into how religious communities can create environments that truly celebrate all abilities, encouraging meaningful participation. We touch on the future concerns many parents face, urging church leadership to develop sustainable programs that address these anxieties. As we wrap up, we express gratitude for the stories of courage and resilience shared, reminding us all of the enduring impact these narratives hold. Tune in for an episode filled with inspiration, practical advice, and a promise of community support that shines brightly.www.johnfela.comSupport the show
In this episode, we continue our discussion of profound autism with Tammy Goff and Lynn Neidigh! There was a lot to discuss, so we kept the conversation going! Profound autism is so often not discussed or depicted in the media and social media arenas, even though it represents roughly 26% of individuals diagnosed with ASD. Join us as we continue to discuss the day-to-day walk with profound autism. If you like our podcast, please share, review, and subscribe! Learn more about us and the podcast on our website. We have a Facebook page! Our Instagram account Like our Facebook page to get the latest updates for the podcast. You can also find Heather Woodring write about her son Zachary at Everyday Adventures with Zachary on Facebook
In this episode, we welcome Tammy Goff and Lynn Neidigh to the podcast! Tammy and Lynn are autism moms like us, and they are a great addition to our discussion about life at the profound end of the autism spectrum. Profound autism is so often not discussed or depicted in the media and social media arenas, even though it represents roughly 26% of individuals diagnosed with ASD. Join us as we bring to light the day-to-day walk with profound autism. If you like our podcast, please share, review, and subscribe! Learn more about us and the podcast on our website. We have a Facebook page! Our Instagram account Like our Facebook page to get the latest updates for the podcast. You can also find Heather Woodring write about her son Zachary at Everyday Adventures with Zachary on Facebook
Instead of grouping together people with autism based on traditional severity scores, what if groupings were done based on functional outcome? Would this help better understand the broad spectrum of autism and why some people with autism are so different than others? Researchers at the University of Minnesota led by Kyle Sterrett, together with UCLA … Continue reading "Profound Autism: The first meaningful autism subgroup"
During sleep, your brain is still active. It is turning all those things you learned during the day into long term memories through connections between the thalamus, hippocampus and frontal cortex. What happens in Profound Autism? How does the brain work during sleep and how will this knowledge lead to better sleep in people? Are … Continue reading "What happens during sleep?"
In part 1 of a 3 part series on Profound Autism, ASF interviews Emily Ferguson, PhD from @Stanford shares what she learned by asking parents and caregivers of Profound Autism “what do you need?” The short answer was: “There is No Help“. The responses were overwhelmingly focused on inclusion in any program or service, since … Continue reading "What do Profound Autism Caregivers Need?"
In this episode, we discuss Autism with Dr. Catherine Lord. Dr. Lord is a Distinguished Professor of Psychiatry and Education at UCLA and one of the foremost researchers in Autism. Dr. Lord provides tremendous insights into her roles in Autism and Autism Assessment.Dr. Lord discusses her journey into Autism, the evolution of the Assessment including the ADOS growing from her basement and being overran by demand to the Gold Standard, the Challenges with understanding the Spectrum, updates on the Lancet Commission and Profound Autism, and Barriers in the Medical and Educational Systems.Dr. Catherine Lord:https://www.semel.ucla.edu/autism/team/catherine-lord-phdhttps://childmind.org/bio/catherine-lord-phd/https://labs.dgsom.ucla.edu/lord/pages/our_teamThe Lancet Commission https://www.thelancet.com/journals/lancet/article/PIIS0140-6736(21)01541-5/abstractThe Lancet https://pubmed.ncbi.nlm.nih.gov/30078460/Nature Reviews Disease Primers https://pubmed.ncbi.nlm.nih.gov/31949163/Autism and Education https://podcasts.apple.com/us/podcast/from-the-spectrum-finding-superpowers-with-autism/id1737499562?i=1000656055638https://music.amazon.com/podcasts/d948fecc-8cfa-4203-8493-a12d2c9c92ed/episodes/bf7ce843-0dd2-4fe8-b800-82ea9cace96d/from-the-spectrum-finding-superpowers-with-autism-autism-and-educationThe mention of a recent article on Predicting Profound Autism and Cell Biology and me shying away from saying "Organoids" in real-time https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11127428/(0:00) Intro(3:22) Dr. Lord's journey into Autism and Recognizing a Spectrum(11:25) The Evolution of Autism Assessment and Discussion on the ADI and ADOS- from making the ADOS in her Basement and being Overran by Demand to the Gold Standard; Revisions of Assessment Instruments(16:36) Gaps in the Autism Assessment(23:15) The Challenges with Understanding the Spectrum of Autism(29:32) Updates on the Lancet Commission and Profound Autism(35:19) Barriers with Autism and the Medical Field(39:29) Barriers with Autism and Education- Four Strikes against the Autistic Phenotype: Sensory-Processing, Speech and Language, Social Communication/Interaction, and Subject Switching (understand B3: Fixated Interests)(44:25) The Future of Autism and Helping Autistics Across the Life Span(51:03) Reviews/Ratings and Contact Infoemail: info.fromthespectrum@gmail.com
Arzu Forough, President and CEO of Washington Autism Alliance, is our guest discussing crisis care for severe/profound autism. She discusses medical necessity, governing policies such as Medicaid, mental health parity, navigating insurance, types of placements, and the systemwide deficiencies in serving the population with severe and challenging behaviors. Washington Autism Alliance works to expand access to healthcare, education and services for people with Intellectual Developmental Disabilities including Autism. WAA provides legal services, individual case management and multi system navigation for individuals and families. www.WashingtonAutismAlliance.org
Scientists have spent a lot of time trying to understand the biology of autism, unfortunately in the past, scientific studies had everyone with autism lumped together in one group and there are so many differences between people with a diagnosis that any features of the diagnosis itself were hard to detect. In the past, researchers … Continue reading "Biology of profound and non-profound autism"
This week's podcast will be an interview with Matt Cicoria from the podcast Behavioral Observations. We discuss the meaning of the words “Profound Autism” and why a blanket term of “autism spectrum disorder” may not be helping anyone on the spectrum. If you are in the Boston area on April 5th, please attend the Profound … Continue reading "“What is Profound Autism?” with Matt from the podcast Behavioral Observations"
Dr. Alycia Halladay joins we to discuss the topic of Profound Autism. If you're not familiar with Alycia's work, she is the Chief Science Officer for The Autism Science Foundation, and host of the excellent show, The ASF Weekly Science Podcast. In this episode, we discuss the changes in Autism diagnosis from the DSM IV to V, the Lancet Commission paper on Profound Autism, why there is a need for this distinction in the Autism spectrum, the conditions under which an individual would be classified as having Profound Autism, the estimated proportion of Autistics who have Profound Autism, the differences in the distribution of sex-based differences in Profound and Non-profound populations, person vs. identity-first language, the importance of reducing stigma for everyone with Autism, criticisms of the proposal of this category, and responses to those criticisms. Even though we packed a lot into this interview, there is way more to this conversation than we had time for, so I'd like to revisit this again sometime in the future. In the meantime, if you're in the New England area, consider attending The Profound Autism Summit, which is taking place on April 5th, 2024 in Burlington, Massachusetts. Alycia will be speaking at that event, and will go into even more detail than we did in this podcast. It's a multi track conference that, according to the PAS site, aims to "bring together leaders from the areas of research, medicine, treatment, advocacy, education, and human services to discuss the needs of those with Profound Autism across disciplines and throughout the lifespan." Even though the Profound Autism Summit features talks from notable Behavior Analysts like Drs. Greg Hanley, Shanna Bahry, Peter Gerhardt, Jessica Slaton and others, it's not just an ABA conference. There will be speakers and panelists representing advocacy groups, emergency services personnel, service providers, and more (check out the entire speakers roster here). The PAS is right around the corner and is almost sold out, so if you're on the fence and are looking for some motivation, here it is (register your spot here!). If you can't make it, consider signing up for their mailing list, as I believe they'll be making the talks available asynchronously some time down the road. Did you know that if you use Apple Podcasts as your player, you can get transcripts to this show? See this for a tutorial. Register for the Profound Autism Summit! Hop on their 100% non-spammy email list for updates on Profound Autism. Session 248: A review of Autism diagnostic practices. Lord et al. (2021). The Lancet Commission on the future of care and clinical research in autism. ASF's post on the Lancet Commission paper. ASF Weekly Science Podcast homepage. ASF Weekly Science Podcast recommendation 1: Nobody ever talks about catatonia. ASF Weekly Science Podcast recommendation 2: "Emergent and Transactional," with Dr. Andrew Whitehouse. This podcast is brought to you by: ACE Approved CEUs from .... Behavioral Observations. That's right, get your CEUs while driving, walking your dog, doing the dishes, or whatever else you might have going on, all while learning from your favorite podcast guests! The University of Cincinnati Online. UC Online designed a Master of Education in Behavior Analysis program that is 100% online and asynchronous, meaning you log on when it works for you. Want to learn more? Go to online.uc.edu and click the “request info” button. Behavior University. Their mission is to provide university quality professional development for the busy Behavior Analyst. Learn about their CEU offerings, including their brand new 8-hour Supervision Course, as well as their RBT offerings over at behavioruniversity.com/observations.
This episode features Stephanie M. Morris , MD, is Medical Director, Center for Autism Services, Science and Innovation (CASSI) At Kennedy Krieger Institute, Baltimore. She is a neurologist with special qualifications in child neurology, and is also an assistant professor in the Department of Neurology at the Johns Hopkins University School of Medicine. She works with kids with autism and I/DD and especially genetic conditions such as Fragile X syndrome and Neurofibromatosis Type 1 (NF1). In this webinar, Dr. Morris explains what seizures and epilepsy are, the different types, the high prevalence of seizures in autism, particularly in severe autism, various treatment approaches, and accessing care. Moderated by Jill Escher, president, NCSA For more information, please see NCSAutism.org
A Controversy About Profound Autism
This week, we are joined by Judith Ursitti who is the Vice President of Government Affairs for CASP, the Council of Autism Service Providers. Formerly a CPA, Judith transitioned into autism advocacy when her son, Jack, was diagnosed at age 2. With over a decade of experience, she's been a driving force behind autism-related legislation in numerous states. Judith's accolades include the Margaret Bauman, MD Award and the Autism Advocacy in Action Award. Today, we'll discuss profound autism, advocacy, and treatment considerations, spotlighting the impactful work of the Autism Science Foundation. Download episode to learn more!! Resources Council of Autism Service Providers | CASP (casproviders.org) (26) Judith Ursitti, CPA | LinkedIn https://twitter.com/CASProviders Council of Autism Service Providers - CASP | Boston MA | Facebook The Council of Autism Service Providers (@casproviders) • Instagram photos and videos ................................................................ Autism weekly is now found on all of the major listening apps including apple podcasts, google podcasts, stitcher, Spotify, amazon music, and more. Subscribe to be notified when we post a new podcast. Autism weekly is produced by ABS Kids. ABS Kids is proud to provide diagnostic assessments and ABA therapy to children with developmental delays like Autism Spectrum Disorder. You can learn more about ABS Kids and the Autism Weekly podcast by visiting abskids.com.
Alice Brooks says when she learned that her son, Darien, had profound autism spectrum disorder, she cried on the front porch all night. Today, she says Darien and his diagnosis are the greatest blessings of her life.
When Jeannette Passanisi landed on my TikTok For You Page (‘the FYP' if you're familiar with the popular social media platform), I knew I had to have her on the show. Jeannette is a mom of 3, with her youngest son, Robbie, being autistic. Jeannette shares his developmental delays, swept aside early on as being the baby of the family; however, she soon realized he was not developing like her older girls and sought advice. Eventually leading to a diagnosis of PDD NOS at age 4. At the time, autism diagnoses were harder to get, especially at a young age. During our conversation, she shares how his diagnosis changed in 2017 to level 3 autism and, more recently, to more profound autism.Having a profoundly autistic son requires a lot of direct care. As Jeannette mentions his lack of sleep, tendencies to rage pace, and other behaviors, Robbie needs to always be accompanied and needs assistance with a lot of daily tasks. Jeannette is also Robbie's #1 advocate, always making sure that he receives the best quality and most positive therapy techniques. She provides great examples of how she advocates for her son. “Everyone has the ability to improve at their own pace” is just one gem from Jeannette's and my talk. You can learn more about her family and autism journey on TikTok @Running4Robbie.#autism #speechtherapyWhat's Inside:A mother sharing her autism journey on TikTok.Seeing signs of autism at age 4.How availability and quality of diagnosis has changed over time.Navigating and advocating therapy services for older autistic children and adults.Mentioned In This Episode:Running4Robbie - TikTokMembership - ABA Speech
We interview Peg Kerswell, the author of a bold new book chronicling her experiences raising a daughter with extremely severe autism. Ellie is nonverbal and self-injurious, she requires 24/7 care with intensive supervision. The grueling, nonstop cycle of care wears Peg down to the bone, but after Ellie is placed in a treatment facility, Peg finally has the chance to breathe, and take an account of the onslaught of traumas the family has endured — a process that prompts her to start writing her story. Peg and Jill Escher discuss the origins of the book, what Peg wants readers to walk away with (hint: the dire realities of severe autism and the desperate need for programs), and the many humorous musings that give her the ability to cope with an absurdly impossible situation. Jill says it is extremely well written, disarmingly honest and one of the best autism memoirs she's ever read. Links: Girl Storm on Amazon: https://a.co/d/cQpq5bk Jill Escher's review of Girl Storm: https://www.ncsautism.org/blog//lost-in-a-bermuda-triangle-of-profound-autism
Alice Brooks says when she learned that her son, Darien, had profound autism spectrum disorder, she cried on the front porch all night. Today, she says Darien and his diagnosis are the greatest blessings of her life.
We started this episode with a certain goal and topic in mind. Like so many things in life, it quickly pivoted in an unexpected direction, turning into an interview of Brittney and her perspective as a caregiver of Austin and his profound needs. We always intended to have an episode like this on Moms Talk Autism. Some of the extremes of Austin's life are not often spoken of or even acknowledged, even within the autistic community. It's not a desired place to be: the outlier of the outliers. Have a listen and reach out if you have more questions or want similar episode topics on the show. It's important that all autistic voices are heard, even those who cannot speak for themselves.
Profound autism prevalence rose from 2002 to 2016, though not nearly as much as non-profound autism did.
Profound autism prevalence rose from 2002 to 2016, though not nearly as much as non-profound autism did.
Quick answer: 26.7%. But what is “profound autism” and why is this label necessary? Have the rates of profound autism changed over time? How many do not have profound autism and are their needs different and how? Listen to this week's ASF podcast and read the paper here: https://autismsciencefoundation.org/wp-content/uploads/2023/04/CDC-Profound-Autism-Statistics_ASF-Copy.pdf
This is an audio recording of the NCSA March 14, 2023 webinar featuring Dr. Lee Elizabeth Wachtel, one of the world's foremost clinicians serving patients with severe and profound autism. She is Medical Director of the Neurobehavioral Unit at Kennedy Krieger Institute and Professor of Psychiatry at Johns Hopkins University, Maryland. She discusses:—The vast chasm between high-functioning neurodiversity and profound autism—How the Lancet Commission defined Profound Autism—The many ways autism causes suffering in this population—How no other medical diagnosis is subjected to same demands by the milder impaired population—And much more Links: To watch the presentation (with slides) on YouTube, please visit the NCSA YouTube channel at https://www.youtube.com/@nationalcouncilonsevereaut902 National Council on Severe Autism: NCSAutism.org/Autism Confidential: AutismConfidential.org/
The brilliant new documentary film, "Beyond" features Tamara Mark, a Hollywood actress and dancer, and now single mom living in LA with her two grown sons who suffer from severe autism, Ian and Harry. It is raw and unflinching in its portrayal of the hardships of severe autism, but also the intense bond and love between mother and child. The film explores many themes: isolation, trauma, coping, and most of all, the desperate need for long-term supports for the severely autistic. We have a candid conversation about the film and our broken care system with the filmmakers, Tamara, and her new husband Marc. Featuring: Dru Ellen Miller, Producer Thiago Dadalt, Filmmaker Tamara Mark Marc Olson Links: https://www.docbeyond.com https://www.dellenmillerproductions.com
Alysson Muotri discusses modeling Pitt-Hopkins syndrome (PTHS) using stem cells and brain organoids. He shares how rescuing TCF4 expression with CRISPR-mediated epigenetic induction of AAV vector delivery provides a gateway for targeted therapeutics for PTHS and related conditions. Series: "Stem Cell Channel" [Health and Medicine] [Science] [Show ID: 38516]
Alysson Muotri discusses modeling Pitt-Hopkins syndrome (PTHS) using stem cells and brain organoids. He shares how rescuing TCF4 expression with CRISPR-mediated epigenetic induction of AAV vector delivery provides a gateway for targeted therapeutics for PTHS and related conditions. Series: "Stem Cell Channel" [Health and Medicine] [Science] [Show ID: 38516]
Alysson Muotri discusses modeling Pitt-Hopkins syndrome (PTHS) using stem cells and brain organoids. He shares how rescuing TCF4 expression with CRISPR-mediated epigenetic induction of AAV vector delivery provides a gateway for targeted therapeutics for PTHS and related conditions. Series: "Stem Cell Channel" [Health and Medicine] [Science] [Show ID: 38516]
Alysson Muotri discusses modeling Pitt-Hopkins syndrome (PTHS) using stem cells and brain organoids. He shares how rescuing TCF4 expression with CRISPR-mediated epigenetic induction of AAV vector delivery provides a gateway for targeted therapeutics for PTHS and related conditions. Series: "Stem Cell Channel" [Health and Medicine] [Science] [Show ID: 38516]
Alysson Muotri discusses modeling Pitt-Hopkins syndrome (PTHS) using stem cells and brain organoids. He shares how rescuing TCF4 expression with CRISPR-mediated epigenetic induction of AAV vector delivery provides a gateway for targeted therapeutics for PTHS and related conditions. Series: "Stem Cell Channel" [Health and Medicine] [Science] [Show ID: 38516]
Alysson Muotri discusses modeling Pitt-Hopkins syndrome (PTHS) using stem cells and brain organoids. He shares how rescuing TCF4 expression with CRISPR-mediated epigenetic induction of AAV vector delivery provides a gateway for targeted therapeutics for PTHS and related conditions. Series: "Stem Cell Channel" [Health and Medicine] [Science] [Show ID: 38516]
Alysson Muotri discusses modeling Pitt-Hopkins syndrome (PTHS) using stem cells and brain organoids. He shares how rescuing TCF4 expression with CRISPR-mediated epigenetic induction of AAV vector delivery provides a gateway for targeted therapeutics for PTHS and related conditions. Series: "Stem Cell Channel" [Health and Medicine] [Science] [Show ID: 38516]
Alysson Muotri discusses modeling Pitt-Hopkins syndrome (PTHS) using stem cells and brain organoids. He shares how rescuing TCF4 expression with CRISPR-mediated epigenetic induction of AAV vector delivery provides a gateway for targeted therapeutics for PTHS and related conditions. Series: "Stem Cell Channel" [Health and Medicine] [Science] [Show ID: 38516]
What is gene therapy and how does it relate to autism? Alysson Muotri, Ph.D., contextualizes the autism spectrum, defines gene therapy, shares how human stem cells can contribute to research, and lays out how gene therapy could be used in the future. Series: "Autism Tree Project Annual Neuroscience Conference" [Health and Medicine] [Science] [Show ID: 38387]
What is gene therapy and how does it relate to autism? Alysson Muotri, Ph.D., contextualizes the autism spectrum, defines gene therapy, shares how human stem cells can contribute to research, and lays out how gene therapy could be used in the future. Series: "Autism Tree Project Annual Neuroscience Conference" [Health and Medicine] [Science] [Show ID: 38387]
What is gene therapy and how does it relate to autism? Alysson Muotri, Ph.D., contextualizes the autism spectrum, defines gene therapy, shares how human stem cells can contribute to research, and lays out how gene therapy could be used in the future. Series: "Autism Tree Project Annual Neuroscience Conference" [Health and Medicine] [Science] [Show ID: 38387]
What is gene therapy and how does it relate to autism? Alysson Muotri, Ph.D., contextualizes the autism spectrum, defines gene therapy, shares how human stem cells can contribute to research, and lays out how gene therapy could be used in the future. Series: "Autism Tree Project Annual Neuroscience Conference" [Health and Medicine] [Science] [Show ID: 38387]
What is gene therapy and how does it relate to autism? Alysson Muotri, Ph.D., contextualizes the autism spectrum, defines gene therapy, shares how human stem cells can contribute to research, and lays out how gene therapy could be used in the future. Series: "Autism Tree Project Annual Neuroscience Conference" [Health and Medicine] [Science] [Show ID: 38387]
What is gene therapy and how does it relate to autism? Alysson Muotri, Ph.D., contextualizes the autism spectrum, defines gene therapy, shares how human stem cells can contribute to research, and lays out how gene therapy could be used in the future. Series: "Autism Tree Project Annual Neuroscience Conference" [Health and Medicine] [Science] [Show ID: 38387]
What is gene therapy and how does it relate to autism? Alysson Muotri, Ph.D., contextualizes the autism spectrum, defines gene therapy, shares how human stem cells can contribute to research, and lays out how gene therapy could be used in the future. Series: "Autism Tree Project Annual Neuroscience Conference" [Health and Medicine] [Science] [Show ID: 38387]
My experience at the Autism-Europe International Congress — and as a parent of a child with profound autism — makes me more convinced than ever that we need to bifurcate the diagnosis of ‘autism spectrum disorder' and add a new diagnosis of ‘profound autism' to better serve this vulnerable population.
My experience at the Autism-Europe International Congress — and as a parent of a child with profound autism — makes me more convinced than ever that we need to bifurcate the diagnosis of ‘autism spectrum disorder' and add a new diagnosis of ‘profound autism' to better serve this vulnerable population.
People who have ‘profound autism' — those with severe intellectual disability, limited communication abilities or both — tend to be excluded from research. The Autism Science Foundation seeks to change that.
People who have ‘profound autism' — those with severe intellectual disability, limited communication abilities or both — tend to be excluded from research. The Autism Science Foundation seeks to change that.
In Part 2 of our interview, Cindy and Amanda discuss how the diagnosis of autism has changed over time. We have heard people use the words “Level 1, Level 2 and Level 3”, and Mild, Moderate, Severe and Profound Autism. But now it all seems to be under the same umbrella term of “autism”, and we no longer can use the word “Asperger's Syndrome”. Amanda believes too much attention is paid publicly to mild, high functioning autism, and not enough to those who are severe like her son, and it could hurt him in the long run. She says the term is so broad now that it's meaningless.
Join us as we discuss the debate surrounding the proposed designation of the term “Profound Autism” in the DSM and its potential impact on the autistic community.
* I would've (just barely) made my monthly deadline if February wasn't such a short month!Thanks for being here for another issue of It's Like This. It feels a bit oblivious to write about my little life when there are massive things going on in the world. I'm worried about war and refugees and all kinds of things. And our life here is still, like this. It helps me to write about it, and if you feel inclined to read or listen, thanks.I walk around the park near my son's day program, forcing myself to take a little time off, instead of running errands or checking things off my “to do” list.It's hard to stop thinking about autism, though, and everything my 22-year-old son needs.One word in particular is weighing on me.Profound.This can mean “demanding deep thought,” so that's appropriate.Profound also means strongly felt. All-encompassing. Deep-seated or severe.It's heavy, this word.The medical journal The Lancet recently published a report on the state of autism research and clinical practice to provide recommendations for how to better serve the 78 million individuals with autism around the world.They are calling for more targeted research and a stepped care approach to support the immediate needs of those living with autism all across this wide spectrum.In one section of their 64-page report, they describe a subset of autistic adults who require 24/7 supervision and who have very limited language, intellectual disability, or both. They suggest the term “profound autism” to identify this population.This description – a need for constant monitoring even as an adult, and a communication impairment that increases the risk of abuse or maltreatment – fits my son like the pizza-stained T-shirts he insists on wearing every day.It shouldn't surprise me that my son shows up on this page of the report. We've been here for a while.But I guess I'm still getting used to it.When someone gets diagnosed with autism at around 3 years old, there are very few indicators of their ultimate outcome – those who will still have “substantial delays” in adulthood “are not clearly distinguishable” from those who develop more typical speech or functioning levels.The Lancet Commission stresses that it would not be appropriate to use a “profound autism” label for very young children, given the variability in the way the disability manifests in the first few years of life. But they show evidence – reviewing the admittedly few case studies available – that the majority of adults who meet the criteria for “profound autism” had settled into this category of the spectrum by their middle elementary years, around ages 8-12.Man, does that pattern sound familiar!That timeframe for my son, from 3rd grade through middle school, was full of struggles about his placement – in school, in the general community, and even in the “autism” world.Inclusive schooling began to give way to more segregated classrooms. His typical peers were leaving him behind, but so were many of his autistic peers.He lasted less than a week in an “autism” classroom at a charter school. They couldn't accommodate his lack of language and emerging maladaptive behaviors - he didn't have the “right kind” of autism for that class, I guess.All of these “autism-friendly” events that were cropping up were not always welcoming to kids like mine.Psychiatrists, even those with autism caseloads, often had nothing to offer my nonverbal child. At conferences, we were all enamored by adults on the spectrum who spoke – verbally or in alternative ways – about their early non-verbal years and how they “made it” into independent living and colleges and careers.Meanwhile, I was fighting with a middle school psychologist who believed there was no need to assess my son's academic progress because he was headed for a future in a “sheltered workshop” anyway.Now, that guy was a jerk. Not to mention he didn't know the world had moved on and there was this thing called home and community based services.But my son's autism was shifting into something all-encompassing by that age.It's no coincidence that I started writing publicly about my kid during this transition. I kept trying to explain to myself and to others just what this “autism” life was about.Because it's certainly not the autism of the quirky mathematicians or socially awkward scholars you see on TV or in movies.Since the Lancet report came out, some advocacy groups have been profiling individuals in a #ThisIsProfoundAutism campaign to help the outside world understand what autism looks like on this side of the spectrum. There is a lot of variation, even within this population, due to add-on medical and neurological conditions, from gut issues to epilepsy. And like my son, the level of care needed often depends on the day, the situation, the access to proper services.But I can see my son clearly in these profiles of “profound autism” – individuals who are sometimes joyful and often hurting, who can be charming and are resilient, who have unique interests that are both endearing and exasperating to their families, and who have profound 24/7 needs.My son has a beautiful, bright grin and an infectious laugh, an incredible visual memory, and a way of drumming complicated beats on his belly and chest that is quite danceable.And, he has struggled with self-injury and meltdowns, can become trapped by his own obsessive rigidity, needs support to learn basic daily living skills, and cannot describe his pain.He spends much of his time spinning his beads and pacing, alone in his thoughts.But when I take him to his day program, he waves his hand at the ground and mumbles “Bye, mom” as soon as we walk into the courtyard. I do not have a role in his routine here and I am expected to leave quickly.He climbs the stairs by himself and soon I hear him open the door to the activity room.His peers greet him with shouts of camaraderie like he's a regular at a bar.We have a community here, and that's a very good thing.I head to the park nearby to walk, read, and recharge.I have a lot of deep thinking to do.The Lancet Commission's report: https://www.thelancet.com/journals/lancet/article/PIIS0140-6736(21)01541-5/fulltextThe Autism Science Foundation's profiles of Profound Autism: https://www.facebook.com/hashtag/thisisprofoundautism This is a public episode. If you would like to discuss this with other subscribers or get access to bonus episodes, visit itslikethis.substack.com
Use of the term ‘profound autism' is among the recommendations made by a panel of autism researchers, clinicians, autistic adults and parents of autistic people. The post First-of-its-kind commission defines ‘profound autism,' issues recommendations appeared first on Spectrum | Autism Research News.
In this episode, we discuss a recent article in "Psychology Today" calling for a label of "Profound Autism" for those on the spectrum in more dir need of services.
Shannon and Nancy discuss autism news about "Visible Spectrum", "Profound Autism", autism linked immune-problems, and a drug for a rare disease that may be effective for treating symptoms related to ADNP syndrome. After that, our hosts our joined by LMFT Vince Redmond to talk about the parent recommended Toy Award Winning toys from the Autism Live Gift and Toy Guide! Check it out! https://www.autismnetwork.com/toy-guide/ Recorded December 10, 2021 'Visible Spectrum': Moving portraits show autism in a new light https://www.cnn.com/style/article/visible-spectrum-mary-berridge/index.html First-of-its-kind commission defines ‘profound autism,' issues recommendations https://www.spectrumnews.org/news/first-of-its-kind-commission-defines-profound-autism-issues-recommendations/ Autism-Linked Immune Problems Are Caused by Maternal Gut Bacteria https://www.genengnews.com/topics/translational-medicine/autism-linked-immune-problems-are-caused-by-maternal-gut-bacteria/ Drug for rare disease could treat Alzheimer's, autism symptoms - study https://www.jpost.com/science/drug-for-rare-disease-effective-for-alzheimers-autism-treatment-study-688231
Shannon and Nancy discuss autism news about "Visible Spectrum", "Profound Autism", autism linked immune-problems, and a drug for a rare disease that may be effective for treating symptoms related to ADNP syndrome. After that, our hosts our joined by LMFT Vince Redmond to talk about the parent recommended Toy Award Winning toys from the Autism Live Gift and Toy Guide! Check it out! https://www.autismnetwork.com/toy-guide/ Recorded December 10, 2021 'Visible Spectrum': Moving portraits show autism in a new light https://www.cnn.com/style/article/visible-spectrum-mary-berridge/index.html First-of-its-kind commission defines ‘profound autism,' issues recommendations https://www.spectrumnews.org/news/first-of-its-kind-commission-defines-profound-autism-issues-recommendations/ Autism-Linked Immune Problems Are Caused by Maternal Gut Bacteria https://www.genengnews.com/topics/translational-medicine/autism-linked-immune-problems-are-caused-by-maternal-gut-bacteria/ Drug for rare disease could treat Alzheimer's, autism symptoms - study https://www.jpost.com/science/drug-for-rare-disease-effective-for-alzheimers-autism-treatment-study-688231
Its time for another episode of Ask Dr. Doreen! Dr. Doreen Granpeesheh, BCBA-D and our host Shannon Penrod discuss the recent autism prevalence numbers released by the CDC, Therapist Recommended toys from the autism Live Gift and Toy Guide, an article from psychologytoday.com about "Profound Autism" and answer questions written in from the live viewers! Tune in and check it out! Links below! https://www.psychologytoday.com/us/blog/inspectrum/202112/lancet-commission-calls-new-category-profound-autism https://www.autismnetwork.com/toy-guide/ https://www.autismnetwork.com/category/ask-dr-doreen/ https://www.tiktok.com/@askdrdoreen? 7:00 2021 Autism Prevalence Numbers 11:10 my question is about the prevalence numbers. I was diagnosed with pddnos around 1999-2000 and regular ASD in 2007. the numbers are so alarming. any way to figure out how big this jump will get in for example 10 years time. what should we do to curtail the numbers a little bit. 15:00 Lance Commission Calls for a New Category https://www.psychologytoday.com/us/blog/inspectrum/202112/lancet-commission-calls-new-category-profound-autism 25:30 My Question is- I want to start my child on the Vitamin b12 shots but the PCP is refusing to give me a prescription. According to her he is not deficient on Vitaminb12 and she is not aware f that info. Please what do I need to do or go to be able to get this prescription for my son. I have done a lot of research and I think this will make a major difference in my son's improvement. I need help 27:50 Hi, I would like to know if a child with ASD has meltdowns for long time and he is non verbal, what can be done to calm him down. 39:28 Therapist Choice Award Winners 39:55 Therapist Choice Award Winner - Baby / Toddler: Toy Winkel Rattle & Sensory Teether by Manhattan Toy https://www.amazon.com/dp/B000BNCA4K?tag=dotdashvwfm-20&linkCode=ogi&th=1&ascsubtag=4165642%7Cnc9dc92b7a09040d993bae18a9838822300 41:09 Therapist Choice Award Winner - Pre-school: Stacking Peg Board Set by Gleeporte https://www.amazon.com/Stacking-Montessori-Occupational-Learning-Preschooler/dp/B07811WXDH/?tag=mj-algiftoy-20 42:45 Therapist Recommendation Winner - School-aged: Balloon Cars by KiwiCo https://www.kiwico.com/us/store/dp/balloon-car-f1903/3243 43:55 Therapist Recommendation Winner - Tween/Teen: Let's Mingle by Fun Tribe Crew https://www.amazon.com/Conversation-Starters-Dinner-Families-Therapy/dp/B08L759TTH/ref=sr_1_16?dchild=1&keywords=toys+for+bored+teens&qid=1632084381&sr=8-16 44:42 Therapist Recommendation Winner - Adult: Noise Canceling Headphones by Cowin https://www.cowinaudio.com/products/cowin-e7-noise-cancelling-headphone?currency=USD&variant=34994984255653&utm_medium=cpc&utm_source=google&utm_campaign=Google%20Shopping&gclid=EAIaIQobChMI4b-k-8KN8wIVGUWGCh0nyQUAEAYYAyABEgLOtfD_BwE 47:13 Therapist Recommendation Winner - Caregiver: Calm Premium Gift Card by Calm https://www.calm.com/gift 49:08 Festival of Toys for Award Winning School-Aged Toys 50:04 Top Toy Award Winner - Ultra Dash by Playmonster® https://www.amazon.com/PlayMonster-7015-Ultra-Dash/dp/B06XX79W45/ref=sxin_13_ac_d_rm?ac_md=3-3-cGxheW1vbnN0ZXIgdWx0cmEgZGFzaA%3D%3D-ac_d_rm_rm_rm&cv_ct_cx=PlayMonster&dchild=1&keywords=PlayMonster&pd_rd_i=B06XX79W45&pd_rd_r=1a15c103-4ea4-442b-a8a4-9919525f416f&pd_rd_w=oFunV&pd_rd_wg=sKB6K&pf_rd_p=c41d1f6c-956c-4fe2-8019-1663b7e1dd23&pf_rd_r=B7J6ED3CAMMETTNCJK68&psc=1&qid=1632079436&sr=1-4-12d4272d-8adb-4121-8624-135149aa9081 50:38 Boredom Buster Award Winner - Craft-tastic® Surprise Balls Kit by Ann Williams https://www.annwilliamsgroup.com/collections/award-winners/products/craft-tastic-surprise-balls 51:05 Best Speech Builder Winner - Gib Gab by Fat Brain Toys® https://www.fatbraintoys.com/toy_companies/fat_brain_toy_co/gibgab.cfm#product-video 52:06 Best Educational Toy Winner - Math Wizards and the Secrets of the Dragons by Osmo https://www.playosmo.com/en/shopping/games/math-wizard-secrets-of-the-dragons/?gclid=EAIaIQobChMI_NGSxs2L8wIVQGxvBB3ZQAF4EAQYAyABEgIBqPD_BwE 52:51 Best Book Winner - Balloons by By Rainbow Mosho https://www.amazon.com/Rainbow-Mosho/e/B08NXZNPN2?ref=sr_ntt_srch_lnk_1&qid=1631845781&sr=1-1&fbclid=IwAR157vATB4EM-MbPgyMi-dNiZxwwmmgqr0PncUeINC_OxAwnaooGaLBghvE 55:35 Sensitive Santa Information 1:00:45 This week on Autism Live
Its time for another episode of Ask Dr. Doreen! Dr. Doreen Granpeesheh, BCBA-D and our host Shannon Penrod discuss the recent autism prevalence numbers released by the CDC, Therapist Recommended toys from the autism Live Gift and Toy Guide, an article from psychologytoday.com about "Profound Autism" and answer questions written in from the live viewers! Tune in and check it out! Links below! https://www.psychologytoday.com/us/blog/inspectrum/202112/lancet-commission-calls-new-category-profound-autism https://www.autismnetwork.com/toy-guide/ https://www.autismnetwork.com/category/ask-dr-doreen/ https://www.tiktok.com/@askdrdoreen? 6:56 2021 Autism Prevalence Numbers 11:15 my question is about the prevalence numbers. I was diagnosed with pddnos around 1999-2000 and regular ASD in 2007. the numbers are so alarming. any way to figure out how big this jump will get in for example 10 years time. what should we do to curtail the numbers a little bit. 15:05 Lance Commission Calls for a New Category https://www.psychologytoday.com/us/blog/inspectrum/202112/lancet-commission-calls-new-category-profound-autism 25:35 My Question is- I want to start my child on the Vitamin b12 shots but the PCP is refusing to give me a prescription. According to her he is not deficient on Vitaminb12 and she is not aware f that info. Please what do I need to do or go to be able to get this prescription for my son. I have done a lot of research and I think this will make a major difference in my son's improvement. I need help 27:55 Hi, I would like to know if a child with ASD has meltdowns for long time and he is non verbal, what can be done to calm him down. 39:33 Therapist Choice Award Winners 39:58 Therapist Choice Award Winner - Baby / Toddler: Toy Winkel Rattle & Sensory Teether by Manhattan Toy https://www.amazon.com/dp/B000BNCA4K?tag=dotdashvwfm-20&linkCode=ogi&th=1&ascsubtag=4165642%7Cnc9dc92b7a09040d993bae18a9838822300 41:14 Therapist Choice Award Winner - Pre-school: Stacking Peg Board Set by Gleeporte https://www.amazon.com/Stacking-Montessori-Occupational-Learning-Preschooler/dp/B07811WXDH/?tag=mj-algiftoy-20 42:50 Therapist Recommendation Winner - School-aged: Balloon Cars by KiwiCo https://www.kiwico.com/us/store/dp/balloon-car-f1903/3243 44:00 Therapist Recommendation Winner - Tween/Teen: Let's Mingle by Fun Tribe Crew https://www.amazon.com/Conversation-Starters-Dinner-Families-Therapy/dp/B08L759TTH/ref=sr_1_16?dchild=1&keywords=toys+for+bored+teens&qid=1632084381&sr=8-16 44:47 Therapist Recommendation Winner - Adult: Noise Canceling Headphones by Cowin https://www.cowinaudio.com/products/cowin-e7-noise-cancelling-headphone?currency=USD&variant=34994984255653&utm_medium=cpc&utm_source=google&utm_campaign=Google%20Shopping&gclid=EAIaIQobChMI4b-k-8KN8wIVGUWGCh0nyQUAEAYYAyABEgLOtfD_BwE 47:18 Therapist Recommendation Winner - Caregiver: Calm Premium Gift Card by Calm https://www.calm.com/gift 49:13 Festival of Toys for Award Winning School-Aged Toys 50:09 Top Toy Award Winner - Ultra Dash by Playmonster® https://www.amazon.com/PlayMonster-7015-Ultra-Dash/dp/B06XX79W45/ref=sxin_13_ac_d_rm?ac_md=3-3-cGxheW1vbnN0ZXIgdWx0cmEgZGFzaA%3D%3D-ac_d_rm_rm_rm&cv_ct_cx=PlayMonster&dchild=1&keywords=PlayMonster&pd_rd_i=B06XX79W45&pd_rd_r=1a15c103-4ea4-442b-a8a4-9919525f416f&pd_rd_w=oFunV&pd_rd_wg=sKB6K&pf_rd_p=c41d1f6c-956c-4fe2-8019-1663b7e1dd23&pf_rd_r=B7J6ED3CAMMETTNCJK68&psc=1&qid=1632079436&sr=1-4-12d4272d-8adb-4121-8624-135149aa9081 50:43 Boredom Buster Award Winner - Craft-tastic® Surprise Balls Kit by Ann Williams https://www.annwilliamsgroup.com/collections/award-winners/products/craft-tastic-surprise-balls 51:10 Best Speech Builder Winner - Gib Gab by Fat Brain Toys® https://www.fatbraintoys.com/toy_companies/fat_brain_toy_co/gibgab.cfm#product-video 52:11 Best Educational Toy Winner - Math Wizards and the Secrets of the Dragons by Osmo https://www.playosmo.com/en/shopping/games/math-wizard-secrets-of-the-dragons/?gclid=EAIaIQobChMI_NGSxs2L8wIVQGxvBB3ZQAF4EAQYAyABEgIBqPD_BwE 52:56 Best Book Winner - Balloons by By Rainbow Mosho https://www.amazon.com/Rainbow-Mosho/e/B08NXZNPN2?ref=sr_ntt_srch_lnk_1&qid=1631845781&sr=1-1&fbclid=IwAR157vATB4EM-MbPgyMi-dNiZxwwmmgqr0PncUeINC_OxAwnaooGaLBghvE 55:40 Sensitive Santa Information 1:00:50 This week on Autism Live
Use of the term ‘profound autism' is among the recommendations made by a panel of autism researchers, clinicians, autistic adults and parents of autistic people.
Use of the term ‘profound autism' is among the recommendations made by a panel of autism researchers, clinicians, autistic adults and parents of autistic people.
© 2020-2025 Ivy Podcast Discovery LLC
