Podcasts about lyfebulb

What happens when patients become true partners in healthcare innovation? In this episode of Moving Medicine Forward, we speak with Dr. Karin Hehenberger, physician, scientist, transplant recipient, and Founder & President of Lyfebulb, about how lived experience can reshape chronic disease care.Diagnosed with type 1 diabetes as a teenager, Karin's journey through medicine, biotech, and ultimately organ transplantation inspired Lyfebulb's mission to empower patients through education, community, and innovation. We explore why patient voices must be included early in development, how patient entrepreneurs are driving real‑world solutions, and why reducing isolation is essential to better outcomes.01:00 Welcome & Guest IntroductionMeet Dr. Karin Hehenberger and the mission behind Lyfebulb.02:10 Living With Chronic Illness Karin's early diabetes diagnosis and how it shaped her path into medicine and research.05:35 When Disease Progresses Anyway Facing kidney failure and vision loss despite careful disease management.06:45 Transplant & New Perspective How kidney and pancreas transplants led to a renewed purpose.07:55 Founding Lyfebulb Why patient education, connection, and innovation are central to empowerment.10:45 Patients as Partners Moving beyond “patient‑centric” language to true collaboration.12:20 Patient‑Driven Innovation Innovation challenges and real solutions created by patients for patients.17:55 The Power of Community Reducing isolation to improve emotional health and daily disease management.22:45 Industry & Research CollaborationWhy patient insight must be integrated early—not as a checkbox.27:15 Rethinking Chronic Disease A vision for managing chronic illness without constant mental burden.31:15 Learn More How to get involved at LyfeBulb.comb

Ripped from the pages of the popular Wildfire Magazine anthology, Igniting the Fire Within, we've curated this special mini podcast for you. Each Friday, hear a new bite-sized episode. Featuring “just the stories” from the book read by the authors. Think of this as your dynamic audiobook version of Igniting the Fire Within. Enjoy! This episode features April Stearns reading AnnMarie's essay “Just Hold Me.” AnnMarie Giannino. Director of Communities at Lyfebulb. Diagnosed at 40. Stage I, IDC, ER+, PR+. Upstate NY. Buy the Wildfire book Igniting the Fire Within: Stories of Healing, Hope & Humor, Inside Today's Young Breast Cancer Community: https://www.amazon.com/dp/B0BJVJ629F?ref_=pe_3052080_397514860More about AnnMarie: https://www.instagram.com/stupiddumbbreastcancer/ Get the free Wildfire email newsletter: https://www.wildfirecommunity.orgLearn about Wildfire writing workshops: https://www.wildfirecommunity.org/workshopsShop Wildfire merch & more: https://www.wildfirecommunity.org/shopSend your voice recording testimonial to editor@wildfirecommunity.org*Free* Get Wildfire and The Burn freebies here: https://www.wildfirecommunity.org/freeFollow Wildfire Magazine:https://www.instagram.com/wildfire_bc_magazine/https://www.facebook.com/wildfirecommunity

This week we met Kishore Pardasani! Kishore was diagnosed with UC when he was in college and struggled to find the right treatment for his disease. Eventually he decided to manage his disease through a permanent ostomy. As he was learning to navigate life with an ostomy he was underwhelmed by the tool available to help him track his supplies, measure his output, and manage his ostomy. That lead him to develop an app called OstoBuddy! OstoBuddy worked well for him and so he decided he needed to offer it to others living with ostomies. He applied for the Lyfebulb challenge addressing the unmet needs of the IBD community and was selected! We hear his whole riveting story, we brainstorm ways to improve ostomy supplies, we talk about the craziest thing he did after being diagnosed with UC, and what it was like to grow up in Barbados. It was such a fun conversation! Please keep in mind that the views and opinions expressed in this program are those of the speakers and should not be considered medical or legal advice. Please consult with your healthcare team on any changes to your disease, diet, or treatment. We want you to stay safe and healthy! ;)Links: Press Release about OstoBuddy being selected for the Lyfebulb challengeOstobuddy App websiteOsto GroupUnited Ostomy AssociationLet's get social!!Follow us on Instagram!Follow us on Facebook!Follow us on Twitter!

Dr. Karin Hehenberger has close to 20 years of experience in the life sciences sector. She served as an executive at Eyetech Pharmaceuticals and Coronado BioSciences, and had strategic management roles at Johnson & Johnson (Vice President, Metabolic Strategy), JDRF (Senior Vice President, Strategic Alliances), and McKinsey; as well as senior partnership roles at public (Brummer & Partners) and private (Scandinavian Life Science Ventures) multibillion-dollar investment funds. She received her MD and PhD degrees from the Karolinska institute, and did her post-doctoral fellowship as a JDRF stipend recipient at the Joslin Diabetes Center, Harvard Medical School. Inspired by her background and diagnosis of type 1 diabetes, she is the founder and CEO of Lyfebulb. Tune in as Karin shares: that she was always in good health — but that at the age of 16, this changed that shortly after, she was diagnosed with type 1 diabetes the fear that came along with her diagnosis what she wishes she'd done differently after her diagnosis that she spent the first decade after diagnosis largely hiding it from the world, even though it played a role in shaping her career that when her dad donated a kidney to her 12 years ago, doctors also suggested she get a pancreas transplant simultaneously what qualifies diabetes patients for pancreas transplants how she recognized that patients can be innovators — and how this inspired her to launch Lyfebulb how she also realized that patients need patients — and how this plays into Lyfebulb's community today how she manages the side effects of her immunosuppressants the importance of educating care partners in the nuances of chronic disease — and how vital it is that patients learn to ask for what they need the obstacles presented by the American healthcare system what it was like to entertain motherhood as a patient on immune-suppressing drugs

A physician, investor, business executive, diabetes expert and double transplant recipient, Dr. Karin Hehenberger is wow-worthy and this week's guest on "Happiness through Hardship" - The Podcast. She spent 20 years in leadership positions at big brands, large investment firms and now as Founder and CEO of Lyfebulb - a patient empowerment platform. Diagnosed with diabetes as a teen, Karin has been dedicated to research and innovation nearly ever since. She's a true wonder woman personally and professionally and her story brings hope for many. This episode provides information and inspiration for those touched by diabetes or interested in learning more. Her organization, Lyfebulb, helps make life easier for patients (not just diabetes patients) by providing a platform with resources, services and support for those with chronic illnesses. Karin is not only highly accomplished, she has a loving soul, a huge heart and a focus on family, which you will hear on this episode. SHOW NOTES Lyfebulb: https://lyfebulb.com/ About Karin: https://lyfebulb.com/team/karin-hehenberger-md-phd/ Lyfebulb on Twitter: https://twitter.com/LyfeBulb JDRF: https://www.jdrf.org/ Beyond Type One: https://beyondtype1.org/ Joslin Diabetes Center: https://hms.harvard.edu/affiliates/joslin-diabetes-center I’m a huge believer in patient advocacy...I love when organizations like Lyfebulb help make life easier for the patient. Having been a cancer patient for over 16 years, it’s important to me to share my story and best practices on how to navigate with cancer. If you know someone who has been recently diagnosed or is dealing with regular cancer treatments - please send them my book “Happiness through Hardship” - a guide and journal for patients, caregivers and friends. I wrote it to help others through cancer and find a little joy along the way. CONNECT with us: www.PrettyWellness.com/podcast - for more information on the podcast episodes 
www.PrettyWellness.com/cancer-resources - easily accessible cancer information
 www.Instagram.com/prettywellness - for daily wellness tips www.CarynSullivan.com - for more information on media, speaking engagements and book partnerships Our Social Media:
 www.Instagram.com/prettywellness www.Facebook.com/PrettyWellness www.Twitter.com/PrettyWellness To Buy the Book:
 Happiness through Hardship - The Book: amzn.to/39PAjuT To Donate a Book to a Cancer Center:
 PrettyWellness.com/book

When Pierluigi Montovani saw what was available to help his father rehabilitate his MS-related foot drop, he was motivated to invent something better. Pierluigi recruited a couple of friends and their efforts led to a breakthrough solution for foot drop that was declared the winner of the Lyfebulb and Bristol Myers Squibb Addressing Unmet Needs in MS: Innovation Challenge. Pierluigi joins me as my guest this week to discuss EvoWalk, his award-winning example of innovation in MS rehabilitation. We'll also share some very unsettling realities about MS treatment that have been revealed in the latest addition to the MS International Federation's Atlas of MS. We're checking in with an exercise coach and one of the participants in the STEP for MS trial. You'll hear about this participant's remarkable progress and we'll tell you how you can still participate in this study. We'll tell you about a new Yale University study that's designed to determine whether Ocrevus can prevent the onset of MS in people diagnosed with radiologically isolated syndrome. And although the oral disease-modifying therapy Ozanimod (Zeposia) has already been approved to treat relapsing-remitting MS in the U.S., Canada, and Europe, we'll update you on the decision not to approve it for use in England and Wales. We have a lot to talk about! Are you ready for RealTalk MS??! Atlas of MS, Part 2 Reveals Some Unsettling Truths  2:19 Zeposia fails to win approval by NICE  6:10 The Step for MS Study with Brendon Truax and Bo Roberts  8:15 Yale study will test whether Ocrevus can prevent MS in patients diagnosed with RIS  14:23 Pierluigi Montovani discusses his father's inspiration in developing EvoWalk for rehabilitating MS foot drop  16:49 Share this episode  27:44 Have a minute? Leave a rating & review for the podcast  28:05 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/194 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.comPhone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society COVID-19 Vaccine Guidance for People Living with MS Introducing EvoWalk Atlas of MS STUDY: Prevention of Clinical Multiple Sclerosis in Individuals with Radiologically Isolated Disease Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating and Review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 194 Guests: Brendon Truax, Bo Roberts, and Pierluigi Montovani Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

Starting your own business with little to no knowledge can only get you so far. To see your vision through, you need business development strategies in place.  In this episode, Jon Margalit shares the things he learned in his entrepreneurship journey. He discusses the importance of building the best team by hiring people with strong values. Jon also talks about what it takes to be an entrepreneur. He emphasizes the need for innovation and creativity. Along the way, entrepreneurs should also know how to identify and pitch to investors. It comes down to knowing your product, your customer, and your investor.  If you are interested to learn some successful business development tips, this episode is for you. Tune in and apply some of these to your business today! Here are three reasons why you should listen to the full episode: Find out how Jon effectively merchandises his goods to big retailers. Explore essential strategies in building your team. Learn more about raising capital and attracting investors for business development. Resources Zero to One: Notes on Startups, or How to Build the Future by Peter Thiel The Lean Startup: How Today's Entrepreneurs Use Continuous Innovation to Create Radically Successful Businesses by Eric Ries Interview with Brad Martineau Some resources where you can find angel investors:   Pasadena Angels Tech Coast Angels Orange County Angel Network Archangels Investors Crunchbase AngelList Think and Grow Rich by Napoleon Hill Episode Highlights Jon's Background At an early age, Jon recognized that he didn't want to work for anyone. Jon's first attempt in business was when he spent $5,000 for a sandwich shop. After two weeks, he found himself cleaning the bathrooms and making sandwiches. Running this business has taught him to be cautious in choosing opportunities in his life. If you want to buy a brick-and-mortar business, observe the traffic that's going into the business. Listen to the full episode to know how Jon was able to turn the business around and sell it.  The Key to Business Development Business development won't happen if you don't have the people driving it. To accomplish this, pay yourself less or equal to the amount you pay to those you hired.  You will eventually earn more in the future; sacrificing early on is the key.  In the early period of your business, take the profit and invest it back into the business.  By doing so, you invest in your team members. They, in turn, will buy into your vision.  The Definition of an Entrepreneur Jon explains that somebody who tries to start a business without turning a profit yet is just canoeing. Jon emphasized that entrepreneurs should initiate things.  Jon differentiates this from business owners who buy a franchise. They didn't have to do marketing, branding, and product development. A true entrepreneur is somebody who creates. They identify a problem and innovate a solution. Building the Best Team Jon believes that references and resumes are irrelevant. What he does is conduct extensive interviews with applicants. Salespeople usually like the colour green. Jon observes that candidates who identified one of their parents as their role models had better values. They were successful and stayed with him for a long time.  When Jon built a finance business, he looked for people who had strong values, understood people's needs, and were good listeners.  Justifications on Sharing Profits For Jon, the only thing that matters in a business is sales. As you undergo business development, see which areas you can use to generate profit. You need to add more revenue streams and profit centers to the business. Next, crack the code in marketing by conditioning your buyers to spend money on as many places as they can. Listen to the full episode to learn how integrating a dry cleaning spindle increased the sales in Jon's sandwich shop.  Acquiring Capital for Business Development Jon shares that investors want to see you stretch money to get traction. They want to know if the entrepreneur has a way to address and minimize the risks. If an investor sees that you have a well-oiled machine that has yielded profits, they'll be more confident that you can grow.  You need to be methodical when dealing with money. Test out what works and what doesn't in small chunks.  Remember to report your financials to your investors.  How to Pitch to Investors Jon shares that he raises money for his business by cold emailing angel investors on LinkedIn. “You don't want to miss out on this.” Jon uses this phrase to attract investors. Attend as many networking events as you can.  Look for angel networks in your community.  Join pitch competitions. You know your business if your pitch is 3 minutes or less.  More Tips from Jon For Jon, keeping rejected emails as notes is a huge motivation. There was an instance where an investor outlined his reasons for not supporting Jon. He kept this in a folder with other rejections.  Jon looks forward to when he can email those who said no and say that they missed out.  Getting into Retail In major and big-box retailers, it is important to understand your audience. The key is to create a concise pitch deck or product deck.  You write an email to your buyers about your next big product. Instead of marketing your product to the big retailers, focus on how you can sell the product to their customers. You need to know how to merchandise correctly. Learn the specific details in the full episode. Making Slides to Get into Retail You attach the slides to the emails you send to the big box retailers. The slides contain your product, the problem, the solution to the problem, and merchandising.  In this instance, you're showing that your product can solve a problem that a target group has.  5 Powerful Quotes “You can have a great business model; you can have a great business plan; you can have a great idea. But if you don't have great people executing, it means nothing; it's worth zero.”  “When you take that money, and you put it right back into your people, it will pay back 100 fold. I promise.” “I feel that the true entrepreneur is somebody that innovates, somebody that creates, somebody that disrupts what's going on, not somebody that jumps in the stream that's already going one way and just start swimming with it.” “You want to spend the least amount of money possible and get the most traction. And just because you get funding, that's not a green light to go spend money. It is in a way as long as you're methodical about it and you do your testing in small chunks that are controlled.” “And I have a folder in my email that says, you know, ‘Nos,' and putting those nos in there. And I do it for a reason. It's because it's so much motivation.” About Our Guest Jon Margalit is the founder and CEO of Togally.com. His company is an innovative online photography platform aiming to “uberize” the sourcing and booking of local photographers. He is also the CEO of TowelMate. This company is a consumer product startup dedicated to solving key and mobile phone storage for gym users. Jon graduated from San Diego University with a strong background in business management, sales and marketing, and merchandising. He has over 12 years of experience in startup business development. In this period, Jon has launched various startups from financial service businesses to consumer packaged goods.  Jon won first place at the 2018 Lyfebulb and UnitedHealth Group Startup Pitch Competition. He was also awarded at the 2015 CyberTECH'S Pitchfest for his Togally pitch. If you want to reach out to Jon, you can email him directly at jon@togally.com. Learn more about his businesses at togally.com and TowelMate. Enjoyed This Podcast? Jon shares some business development tips and tricks to help aspiring entrepreneurs hit the ground running.  If you enjoyed the podcast, be sure to subscribe and share it with your friends! Post a review and share it! If you enjoyed tuning in, then leave us a review. You can also share this with your family and friends so this can inspire them to take ownership of their lives. For episode updates, visit our website. You may also tune in on Apple Podcasts.  PS. Do you already have a successful business, meaning you're up, running, and paying your bills with some profit left over? Are you interested in growing your business, automating/streamlining things, and staying one step ahead of your competition?

Living through a lockdown can be challenging, and it's resilience that helps us get through life's challenges and recover from setbacks. And while resilience may have become a new topic of conversation for the world at large, when you're living with the uncertainty of MS, you come to realize that resilience is one of the most important tools in your self-care toolbox.     Joining me to talk about building your resilience is Dr. Meghan Beier. Dr. Beier is a Rehabilitation Neuropsychologist and an Assistant Professor of Physical Medicine at the Johns Hopkins University School of Medicine, where she specializes in cognitive rehabilitation and neuropsychological assessment and intervention. We'll also share the National MS Society's Vaccine Advisory Group's updated vaccine guidance for people living with MS. We'll tell you about the new oral disease-modifying therapy that just received FDA approval. You'll hear about the newly-announced partnership between the MS Society and Park Health, and we'll explain how this partnership will deliver personalized one-to-one health coaching to help people live better with MS. And we'll tell you about the entrepreneur who won the Lyfebulb Bristol Myers Squibb MS Innovation Challenge by setting out to resolve one of his father's most bothersome MS symptoms. We have a lot to talk about! Are you ready for RealTalk MS??! National MS Society's Vaccine Advisory Group announces updated guidance for people living with MS  2:03 Here's your chance to participate in COVID-19 & MS research  4:32 Ponesimod receives FDA approval   5:29 National MS Society announces partnership with Park Health  6:24 Evolution Devices wins Lyfebulb Bristol Myers Squibb Innovation Challenge  8:18 My interview with Dr. Meghan Beier  11:19 Share this episode  25:35 Take the RealTalk MS Listener Survey and you could win a $100 Amazon Gift Card  25:54 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email:  https://realtalkms.com/186 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.comPhone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com RealTalk MS Listener Survey (You'll be entered to win a $100 Amazon Gift Card!) National MS Society COVID-19 Vaccine Guidance for People Living with MS COVID-19 Studies Recruiting People with MS Evolution Devices CAN-DO MS Program Information and Registration Join the WalkMS RealTalk MS RealWalkers Team Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating and Review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 186 Guests: Dr. Meghan Beier Tags: MS, MultipleSclerosis, MSResearch, MSSociety, MSActivist,  Resilience, COVIDVaccine, Lyfebulb, RealTalkMS Privacy Policy

As both a medical practitioner and a patient, Lyfebulb founder Dr. Karin Hehenberger knows a thing or two about living with chronic disease. As a young girl, she was diagnosed with diabetes and went on to earn her M.D. and a doctorate studying health complications around the disease. This week, Karin joins Paul and Gina to talk about Lyfebulb — the online platform she built with Postlight’s help to empower those living with chronic disease. Links:  Catalyst  Lyfebulb  TransplantLyfe  Karin Hehenberger - Twitter

‘Lyfebulb is a patient engagement platform with the mission of reducing the burden of living with chronic disease through the power of the patient.’ But what does that mean? In this interview with Dr Karin Hehenberger we unpack what it means to have a company bringing together the insights of a patient and caregivers living with chronic disease and industry and innovation who want to find solutions to improve It. www.lyfebulb.com Apologies for my voice in this episode, I’m struggling with fatigue and brain foggy ness at the moment.

Daniel G Garza has been an HIV/AIDS Patient Leader, Advocate, and Educator since 2001 starting in The Rio Grande area of Texas, Houston, and now in Southern California.With a foundation based on teaching prevention to high schools, colleges, and universities. A member of the Board of Directors for Radiant Health Centers and Chair of the Client Advisory Committee. A member of Positively Fearless campaign, Ambassador for Global Healthy Living Foundation, Rainbow Soul Circle, LyfeBulb, and Wisdo, On social media, you can follow him on his Put It Together Conversation Podcast, HIV Positive Life on Facebook, Twitter, YouTube, and Instagram. He is the winner of the Hero of Hope Award for Patient Advocacy from iPain International Foundation. His company Lilmesican Productions, a Social Enterprise, is producing shows that maximize the benefits to the community. Links: Radiant Health Centers https://www.radianthealthcenters.org/ Positively Fearless https://www.positivelyfearless.com/ Put It Together Conversations Podcast on YouTube https://www.youtube.com/playlist?list=PLlh31gond1YDvCjld52l_46Ko7-Fw6tdS HIV Positive Life on Facebook https://www.facebook.com/HIVPositiveLife Lilmesican Productions https://lilmesican.wixsite.com/lilmesicanprod

Multiple Sclerosis News Today's columnist, Jenn Powell, discusses the Innovation Challenge sponsored by Lyfebulb and Bristol Myers Squibb. Plus, Multiple Sclerosis News Today's columnist, Jessie Ace, shares the advice from her and her husband that is often missed by medical professionals. ===================================== Treatment for Relapsing MS Progression | MAYZENT® (siponimod) Read about MAYZENT, a once daily pill that can significantly slow down disability progression in people with relapsing MS. See full prescribing & safety info. http://ChangesInRMS.com ===================================== Are you interested in learning more about multiple sclerosis? If so, please visit: https://multiplesclerosisnewstoday.com/ ===================================== To join in on conversations regarding multiple sclerosis, please visit: https://multiplesclerosisnewstoday.com/forums/

We talk about Lief Therapeutics, Lyfebulb, Mental Health, Anxiety, Depression, Triggers, Monks, and heart rate variability (HRV).Get books, comics, graphic novels and more at bunny17media.com. Use the code PIT at checkout for 15% off your purchase!

Trishna Bharadia is a true mover and shaker! As a health advocate, writer, inspirational speaker, mentor and ambassador for organisations including MS Society UK, ADD International, Cambridge MS Therapy Centre, Asian MS and Lyfebulb, she has raised awareness to the public and healthcare professions about MS and the needs of patients suffering with chronic illness and hidden disabilities. You may have seen her on BBC1’s The People’s Strictly for Comic Relief (Strictly Come Dancing for non-celebrities)! - there was also a short documentary series about her time on the show. She tells us how she began her volunteering positions and becoming a real leader in patient advocacy. She’ll also discuss balancing volunteering with her full time career as a specialist Spanish translator.

Amanda DeJesus was the recipient of a heart transplant at the age of 15. Inspired by her need to eat heart-healthy, she developed a passion for cooking and trained as a chef, graduating from the Art Institute of Houston in Texas. With her friend and stroke survivor Kelly Fucheck, she is co-host of the podcast Unfiltered Survivors. In 2017, Amanda served as a spokeswomen for the American Heart Association’s Go Red for Women campaign; she continues to volunteer with the AHA, and is also affiliated with Donate Life America and Lyfebulb. As a chef, she continues to serve clients seeking to find heart-healthy alternatives to their favorite dishes, assisting patients who are undergoing lifestyle changes and providing support and education — from shopping to cooking lessons. She is currently on the list for a second heart and kidney transplant, so tune in and join us in wishing her luck! Tune in as Amanda shares: that Amanda’s sister was also born with a heart defect — which was repaired when she was a baby that Amanda had her first open-heart surgery at 7 days old that at 12 years old, her doctors discovered she had dilated cardiomyopathy — and gave her a pacemaker that her heart was failing by age 13, and she had her transplant at 15 that most heart transplants last a decade — and Amanda’s has now lasted well beyond expectation that she needs a kidney transplant along with her heart — and the kidney transplant is necessary because of long-term use of anti-rejection drugs that she’s currently doing dialysis 3 days a week that heart attacks have traditionally been regarded as a “white man’s disease” — and that only recently has research shown symptoms to present differently in women her experiences of discrimination in the medical system that the privatization of healthcare has threatened her family’s stability on numerous occasions the importance of bridging the gap between pediatric and adult healthcare that she lost friends who were lost in the system during the transition to adult care the problems with the US healthcare system, and how it’s linked so closely to education and access to healthy food how understanding her own mortality has made her bold and live life without regrets the importance of mental health support when living with chronic illness how joining her community and speaking about her struggles has given her strength that she’s had to learn that spontaneity is OK

In this week’s episode Amanda and Kelly are welcoming Brandon Mouw to the podcast! Brandon is an inspirational survivor, a fellow LyfeBulb ambassador with Amanda and an amazing person who lives life to the fullest. Listen as Brandon shares his incredible story, discusses his journey with Type 1 Diabetes and receiving a pancreas only transplant.

Parlaying a cancer diagnosis into an advocacy powerhouse, Cancer Badass AnnMarie Otis gives voice to people impacted by breast cancer, MS, and mental health issues. Since establishing the non-profit Stupid Dumb Breast Cancer organization in 2012, AnnMarie has worked tirelessly to engage the community through awareness programs and fundraising initiatives, and to ensure that everyone who suffers is heard. She currently serves as Director of Communities for Wisdo, as social media manager to Lyfebulb, CEO of CLICKsocial.me and as a influencer for The Mighty.

A senior at Indiana University majoring in chronic illness advocacy and journalism, Sneha Dave is no stranger to #SpoonieLife. Diagnosed at the age of six with ulcerative colitis (UC), she is the founder of Health Advocacy Summit (HAS), an organization that hosts events in various cities around the country to provide education, insight, and community to an often underserved patient population affected by chronic illness: young adults transitioning from pediatric to adult care. HAS’s sister organization, the Crohn’s and Colitis Young Adults Network (CCYAN), connects the IBD youth community around the world. An advocate through and through, Sneha has spoken on Capitol Hill, featured nationally on C-SPAN, and contributed to U.S. News and World Report, Yahoo! News, Huffington Post, and others. In 2018, the We Are Family Foundation chose her as a Global Teen Leader through its Three Dot Dash program. Sneha has completed a research fellowship in health policy at Harvard T.H. Chan School of Public Health, where she is continuing research as an undergraduate in health care related to young adults. She has also interned at the Crohn’s and Colitis Foundation Headquarters and Pfizer Global Headquarters in health economics and outcomes research for Inflammation and Immunology. She created and chairs the first disability caucus in Indiana, and has served on the Democratic National Committee Disability Policy Subcommittee and Women’s March Disability Caucus. Sneha was awarded two academic fellowships with the Association of Health Care Journalists. She was previously a national policy fellow and now serves as the youngest director on the board for RespectAbility, a nonprofit fighting stigma and advancing opportunities for people with disabilities. Sneha has spoken at Stanford Medicine X; at the Harvard Youth and Public Health Summit; the National Academies of Science, Engineering, and Medicine; and other major avenues. She is also a national ambassador for the Invisible Disabilities Association and Lyfebulb. Sneha is passionate about advancing health care in rural communities, and is an ardent proponent for greater transparency in the patient advocacy space. Tune in as Sneha shares… how she was diagnosed with ulcerative colitis, and what treatment was like in the early stages of her illness that she used the restroom up to 20 times a day in her worst flares that she weighed about 60 lbs during her freshman year of high school that she had a full colectomy in her freshman year of college (removal of her large intestine and colon) that she now lives with a j-pouch and has chronic antibiotic-refractory pouchitis —and is still seeking a viable treatment option for this condition why bowel disease is difficult to discuss as a young adult background on 504 accommodations (disability accommodations for US high school students) how Sneha’s mom has been an advocate for her over the years — and how they’ve become closer as a result how she seeks accommodations for her illness, and the barriers she’s had to surmount to do so her journey to identifying as disabled why she started Health Advocacy Summit the urgent need for peer support among young women with chronic illness, in particular why young adults have such particular needs in terms of disability support, community, and access

Episode 62: Turn on Your Lyfebulb with Dr. Karin HehenbergerDr. Karin Hehenberger is an experienced life sciences executive, who has dedicated her career to applying medical science to impacting people living with chronic disease. She founded and launched Lyfebulb in January of 2014, a company promoting a healthy, take-charge lifestyle for those affected by chronic disease. Grounded with its strong foundation in diabetes, the company has expanded disease states to cover patients impacted by cancer, inflammatory bowel disease, multiple sclerosis and depression/anxiety.You can learn more about Dr. Hehenberger and Lyfebulb: Social Media: https://www.instagram.com/lyfebulb/https://www.facebook.com/Lyfebulb/https://twitter.com/LyfeBulbWebsite: https://lyfebulb.com/Use coupon code THRIVE to receive 50% off The Crush Cancer Online 10 module course. This course has helped so many cancer survivors learn how to thrive.You can sign up and learn more about it here: https://darakurtz.comYou can learn more about Garth and Dara on their websites and on social media:Garth’s website:www.napkinnotes.comDara’s website:www.crazyperfectlife.comGarth’s Facebook Page:https://www.facebook.com/napkinnotes/Dara’s Facebook Page:https://www.facebook.com/crazyperfectlife/Garth’s Instagram Page:https://www.instagram.com/napkinnotesdad/Dara’s Instagram Page:https://www.instagram.com/crazyperflife/

The Multiple Sclerosis Association of America, or MSAA, provides programs and resources designed to improve the lives of people affected by MS. Whether it's financial assistance for an MRI exam, a new computer, mobility equipment, or even a cooling vest, the MSAA can help.   My guest today is Gina Murdoch, the President and CEO of the MSAA, and we're talking about the organization's almost 50-year history, their shared management philosophy of living with MS, and we're taking a deeper dive into into some of their remarkable programs. We're also talking about the Progressive MS Alliance Scientific Steering Committee Meeting that begins tomorrow in Copenhagen, Denmark. You'll hear about the Patient 360 meeting that EMD Serono hosted last week in Washington, D.C., and I'll tell you why that meeting was so special to me. We're talking about the just announced $100,000 research grant to investigate the challenges faced by people of color who are living with MS and their caregivers. You'll learn about the special search engine that matches MS patients with financial support for disease-modifying therapy. We'll tell you about 2 new programs from Can-Do MS, focused on young adults who are living with MS and people who are living with secondary progressive MS. And you'll find out how you can be my special guest on the 100th episode of RealTalk MS. We have a lot to talk about. Are you ready for RealTalk MS??! Progressive MS Alliance Scientific Steering Committee Meeting in Copenhagen  :22 EMD Serono Hosts Patient 360 Meeting  2:27 Accelerated Cure Project & Us Against Alzheimer's Receive $100,000 Grant to Study Challenges Faced by People of Color Living with MS & Alzheimer's Disease   6:07 MAT Can Connect You to Financial Support for Disease-Modifying Therapy  7:53 Can-Do MS Announces Programs for Young Adults Living with MS and People Living with Secondary Progressive MS  9:58 Finalists Announced for Lyfebulb-Celgene Addressing Unmet Needs in MS: Innovation Challenge   12:22 My Interview with MSAA's Gina Murdoch  16:13 ___________ ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.comPhone: (310) 526-2283 ___________ LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com International Progressive MS Alliance Multiple Sclerosis Association of America MAT (Medicine Assistance Tool) Can-Do MS Young Adults Take Charge Program Can-Do MS Secondary Progressive MS Webinar Series Celgene Lyfebulb MS Innovation Challenge Be My Guest on RealTalk MS Episode #100 Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating & Review  ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 90 Hosted By: Jon Strum Guest: Gina Murdoch Tags: MS, MultipleSclerosis, MSResearch, ProgressiveMS, CanDoMS, MSAA, EMDSerono, Celgene, Lyfebulb, Caregiving, RealTalkMS

No matter what sort of challenge a caregiver may be facing -- financial, emotional, or just trying to find the right resources at the right time, every caregiver challenge is made more difficult by that accompanying feeling of isolation that so many caregivers experience. My guest is Heidi Telschow, manager of Fairview Health Services' Caregiver Assurance program, a unique program designed to seamlessly connect caregivers to the resources they need.      We're also talking about the eye-popping increase in the prevalence of MS in the United States, now reaching nearly one million adults. We'll tell you about a study that shows how the early use of more intensive MS disease-modifying therapy may provide better outcomes for people living with MS, you'll hear about an Innovation Challenge that could reward your inner entrepreneur with $25,000 in cash, and we'll tell you why the FDA has been asked to fast-track a cannabis-based treatment for spasticity in progressive MS.   We have a lot to talk about! Are you ready for RealTalk MS?! ___________ STUDY: MS Prevalence In the United States Nears 1 Million  2:18 STUDY: Long-Term Benefit Seen in Early Use of More Intensive   Disease-Modifying Therapy  5:42 Lyfebulb-Celgene Innovation Challenge in MS  9:04 FDA Requested to Fast-Track Cannabis-Based Treatment for Spasticity in Progressive MS  10:43 My Interview with Heidi Telschow from Caregiver Assurance  12:36 ___________ ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email:  jonstrum@RealTalkMS.comPhone: (310) 526-2283 ___________ LINKSIf your podcast app doesn’t allow you to click on these links, you’ll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Download the RealTalk MS App for iOS Download the RealTalk MS App for Android A New Way to Estimate Neurologic Disease Prevalence in the United States Illustrated with Multiple Sclerosis Validation of an Algorithm for Identifying MS Cases in Administrative Health Claims Datasets The Prevalence of Multiple Sclerosis in the United States: A Population-Based Estimate Using Health Claims Data RealTalk MS Episode 74: Induction vs Escalation Therapy with Dr. Aaron Boster Clinical Outcomes of Escalation vs Early Intensive Disease-Modifying Therapy in Patients With Multiple Sclerosis Application for Lyfebulb-Celgene Innovation Challenge in MS Give RealTalk MS a Rating & Review ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 79 Hosted By: Jon Strum Guest: Heidi Telschow Tags: MS, MultipleSclerosis, MSResearch, TwiceAsMany, Lyfebulb, Caregiving, RealTalkMS

Today’s guest on the FUMS Podcast is Dr. Karin Hehenberger. After being diagnosed with type 1 diabetes at a young age, Karin has since gone on to dedicate her life to helping others impacted by chronic disease. She eventually created Lyfebulb, an innovative patient-empowerment platform whose mission is to reduce the burden of chronic disease through the power of the patient - an idea that all of us in the FUMS nation can get behind! Most excitingly, Karin talks about the forthcoming MS Innovation Challenge, which looks to support patient entrepreneurs whose companies are developing solutions which address needs currently unmet in MS. Topics covered include: Karin's life with chronic disease and her decision to go into medicine Lyfeulb's mission and aims The partnership between Lyfebulb and pharmaceutical company Celegen which led to the MS Innovation Challenge- and how YOU could get involved! … and so much more! Resources mentioned in this episode (clickable links): Lyfebulb website Addressing Unmet Needs in MS: Innovation Challenge application portal(closes April 12 2019) Lyfebulb on Facebook Lyfebulb YouTube channel Lyfebulb on Twitter ** Sign up for the FUMS Friday Night 6 Pack at FUMSnow.com. And for more information about Patients Getting Paid, please visit FUMSnow.com/PatientsGettingPaid. **If you get value from the FUMSnow Podcast Show, please consider leaving a rating or review wherever you get your podcasts. Reviews are really important and help to spread the word about what we do. It's quick and easy to do and we have some instructions here. Thanks for your time and support! **Don’t forget to join us on the FUMS Facebook Pageand on Twitter at FUMS. Have an idea for a topic or someone to interview? Perhaps YOU?? Send me an email at Kathy@FUMSnow.com. And remember to speak to this stupid disease as it deserves: tell it FUMS every day!!

Dr. Karin Hehenberger, is the CEO and Co-Founder of Lyfebulb, an organization whose mission is to "Reduce the burden of chronic disease through the power of the patient." In our conversation we discussed: The origin and goals of Lyfebulb since its inception in 2014. How her own diagnosis with Type 1 Diabetes at the age of 16 and subsequent kidney and pancreas transplants impacted her and the mission and goals of Lyfebulb. The roles of Patient Ambassadors and Patient Entrepreneurs. Why Lyfebulb is a patient-centric organization. The upcoming Lyfebulb-Helsinn Innovation Challenge. The future of Lyfebulb. Apply For the Lyfebulb-Helsinn Innovation Challenge - https://lyfebulb.com/innovation-award/helsinn-2019/ Connect With Lyfebulb Visit their website - https://lyfebulb.com/ Lyfebulb on Instagram - https://instagram.com/lyfebulb Lyfebulb on Twitter - https://twitter.com/lyfebulb  Lyfebulb on Facebook - https://www.facebook.com/Lyfebulb Lyfebulb on YouTube - https://www.youtube.com/user/Lyfebulb WE Have Cancer Links Subscribe to the show: Apple Podcast - https://itunes.apple.com/us/podcast/the-colon-cancer-podcast/id970806995?mt=2 Google Podcasts - https://www.google.com/podcasts?feed=aHR0cHM6Ly93ZWhhdmVjYW5jZXJzaG93LmxpYnN5bi5jb20vcnNz Spotify - https://open.spotify.com/show/798gZB3qGwUnpwopVV2Bxh?si=PIzyypykRauLKckji9LXsQ Stitcher - https://www.stitcher.com/s?fid=61770&refid=stpr Follow WE Have Cancer on Social Media Like our Facebook page - https://www.facebook.com/wehavecancershow/ Join our private Facebook group - https://www.facebook.com/groups/wehavecancershow/ Follow us on Twitter - https://twitter.com/wehavecancerpod Follow us on Instagram - https://instagram.com/wehavecancerpod Follow us on LinkedIn - https://linkedin.com/company/wehavecancer Know someone touched by cancer who has an inspiring story? Nominate a guest to appear on the podcast - https://wehavecancershow.com/guest

On the show today we have Dr. Karin Hehenberger. Some of you might know Dr. Hehenberger from her amazing work with her venture LyfeBulb, but for those of you who are not familiar with her, Dr. Hehenberger is a type 1 who is no longer type 1.  Dr. Hehenberger has a list of credentials and professional accomplishments that make her the ultimate multi-hyphenate. She was on the Swedish National Tennis Team, she earned her Medical Doctorate and her PhD in molecular medicine, she was a post-doc fellow at Harvard, a consultant for McKinsey & Company, has worked in big pharma and start-up biotech companies, and the list goes on and on. What's remarkable about her story is that she navigated all of those challenging environments, and succeeded on a large scale, with type 1 diabetes. But as the years went on, and she experienced a period of significant burnout and poor control of her health, all the complications anyone with diabetes fears, started to set in. Dr. Hehenberger ultimately found herself with significant damage to her vision, and her kidneys were failing. She was on the edge of complete physical breakdown.  Ultimately, it was her father who saved her live with an incredible gift, and then a few months later it was a donor, and a very talented transplant team in Minnesota who would provide Dr. Hehenberger with a chance to experience life without type 1 again.  Dr. Hehenberger is the ultimate patient-entrepreneur and you'll learn through this interview that she is all in when it comes to finding and supporting the next generation of budding patient-entrepreneurs through her venture catalyst LyfeBulb. As I release this episode, Dr. Hehenberger and her team are over in Copenhagen Denmark for this year's LyfeBulb/ Novo Nordisk Innovation Summit where they will be working with some of the best young innovators in the world of diabetes. There's a lot to this story and our conversation is a deep look into denial, motivation, personal drive, an individual's love of science, and a belief that those impacted by a chronic condition should be at the center of creating ventures that will help minimize the impact of that condition on the world.

Welcome to 2017! Dr. Karin Hehenberger, founder and CEO of Lyfebulb, joins me from Switzerland for a conversation about her diabetes diagnosis, her higher education pursuits, and the impetus behind creating Lyfebulb. We also spend some time talking about the Lyfebulb-Novo Nordisk Innovation Award and the value in supporting patient innovators and entrepreneurs. For more information about Lyfebulb, visit lyfebulb.com. Run Time - 42:01 Send your feedback to feedback@justtalkingpodcast.com.

July’s Diabetes Late Nite podcast is inspired by the girl group,  Fifth Harmony. Fifth Harmony is helping us celebrate our Fifth Anniversary of podcasting. Thank you for tuning in to our dazzling brand of diabetes educational outreach featuring music, games, expert advice,  prizes and pop culture news.  The X Factor creator Simon Cowell decided that individual contestants Dinah Jane Hansen, Lauren Jauregui, Ally Brooke, Normani Kordei, and Camila Cabello were too special to let go, so at the end of the show's Boot Camp week, the five young women became the girl group, Fifth Harmony. With their show-stopping vocals, undeniable charisma, and genuine sisterly bond, the "fearsome fivesome" (as they became known) endeared themselves to viewers across the country.  "I knew from the girls' first performance at judges' homes in Miami that we'd done the right thing," Cowell says. "The chemistry between the Fifth Harmony girls both on and off stage is fantastic. They are really great girls who have become best friends. They're fun to be around and are all incredibly talented." Guests: the Charlie's Angels of Outreach, Dr. Ivan J. Suñer, Dr. Karin Hehenberger from Lyfebulb, Mama Rose Marie, Poet Lorraine Brooks and real-life diva living with diabetes, Dana.  Throughout the podcast we will be playing selected tracks from Fifth Harmony’s Reflections album courtesy of SONY MUSIC. Diabetes Late Nite is a fast-paced, full-filled hour of diabetes education, music, pop culture news and wellness advice that encourages listeners to “laugh a little, learn a lot.” 

After facing near financial ruin while being treated for breast cancer Molly MacDonald created The Pink Fund to provide non-medical financial aid for women battling the disease. Diagnosed with Type 1 diabetes as a teenager, Dr. Karin Hehenberger devoted her life's work to helping people manage the disease. She's author of "Ten Things You Need To Know About Living with Diabetes" and founder of Lyfebulb, an educational platform & social community for individuals living with chronic disease.This show is broadcast live on W4WN Radio – The Women 4 Women Network (www.w4wn.com) part of Talk 4 Radio (http://www.talk4radio.com/) on the Talk 4 Media Network (http://www.talk4media.com/).

Dr. KARIN Hehenberger, is and experienced life sciences professional, with a background as an MD and PhD, and a post doc in diabetes from Harvard. She started her own company, Lyfebulb, to connect, inspire and impact lives of people with diabetes, a disease she have had since she was 17. Karin is considered an expert in the field of Metabolic diseases and is an invited speaker at numerous conferences on the topic as well as in assessing innovative products across therapeutic areas. See her beautiful infographic show notes, plus her top tips and advice for entrepreneurs and aspiring entrepreneurs at www.TodaysLeadingWomen.com or by clicking here!

Dr. Karin Hehenberger is a Type 1 diabetic and the founder of Lyfebulb, an educational and social platform dedicated to helping those with chronic illnesses lead better lives. Prior to founding Lyfebulb, Dr. Hehenberger held executive positions in the life sciences and devoted her career to identifying, analyzing, developing and promoting products across the therapeutics, devices and consumer healthcare industries.