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In this episode we're sharing the highlights from our recent interview with Carol Steinberg, whose children's book, Come Grandpa Meow, Let's Fly, adds a much-needed resource for families navigating the challenges of Alzheimer's and dementia. A Personal Story Sparked by Loss Carol's journey began more than 25 years ago, during her own father's struggle with Alzheimer's. She originally wrote the book as part of her grieving process, but it wasn't until she'd spent years working at both local and national Alzheimer's organizations that the story truly found its shape. The finished book beautifully balances respect, understanding, and connection for readers young and old. Empowering Children & Families One thing that sets Carol's children's book apart is its focus on empathy, understanding, and practical intergenerational activities that help children stay connected with loved ones living with dementia. As Carol says, “We need to bust the stigmas. We need the world to know that people with dementia are still people. They're still your loved ones. They may act differently—and I hope I show that in the book.” For Adults, Too Although written for children (ages 5 to 9, but suitable for older readers too!), this book is just as impactful for adults. As Vicki Tapia, AlzAuthors acquisitions editor, noted, the story “helps explain and cope with the changes that are happening [to a loved one].” Plus, the activities at the end offer concrete, research-backed ways that families can nurture connection. Recommended by the Experts Don't just take our word for it—Come Grandpa Meow, Let's Fly comes with glowing endorsements from field leaders like Teepa Snow, Dr. Daniel Potts, and people living with dementia, who praise its realism, sensitivity, and stigma-busting power. Whether you're a caregiver, educator, parent, or grandparent, Carol's book is a gentle guide to fostering compassion, understanding, and lasting memories—no matter where you or your loved one are on the dementia journey. After the Podcast Purchase “Come Grandpa Meow, Let's Fly" Read Carol's AlzAuthors blog post Learn about the Moderators Marianne Sciucco Christy Byrne Yates About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here's what you need to know We've got merch! Shop our Store
In this episode we're sharing the highlights from our recent interview with Carol Steinberg, whose children's book, Come Grandpa Meow, Let's Fly, adds a much-needed resource for families navigating the challenges of Alzheimer's and dementia. A Personal Story Sparked by Loss Carol's journey began more than 25 years ago, during her own father's struggle with Alzheimer's. She originally wrote the book as part of her grieving process, but it wasn't until she'd spent years working at both local and national Alzheimer's organizations that the story truly found its shape. The finished book beautifully balances respect, understanding, and connection for readers young and old. Empowering Children & Families One thing that sets Carol's children's book apart is its focus on empathy, understanding, and practical intergenerational activities that help children stay connected with loved ones living with dementia. As Carol says, “We need to bust the stigmas. We need the world to know that people with dementia are still people. They're still your loved ones. They may act differently—and I hope I show that in the book.” For Adults, Too Although written for children (ages 5 to 9, but suitable for older readers too!), this book is just as impactful for adults. As Vicki Tapia, AlzAuthors acquisitions editor, noted, the story “helps explain and cope with the changes that are happening [to a loved one].” Plus, the activities at the end offer concrete, research-backed ways that families can nurture connection. Recommended by the Experts Don't just take our word for it—Come Grandpa Meow, Let's Fly comes with glowing endorsements from field leaders like Teepa Snow, Dr. Daniel Potts, and people living with dementia, who praise its realism, sensitivity, and stigma-busting power. Whether you're a caregiver, educator, parent, or grandparent, Carol's book is a gentle guide to fostering compassion, understanding, and lasting memories—no matter where you or your loved one are on the dementia journey. After the Podcast Purchase “Come Grandpa Meow, Let's Fly" Read Carol's AlzAuthors blog post Learn about the Moderators Marianne Sciucco Christy Byrne Yates About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here's what you need to know We've got merch! Shop our Store
Segundo episódio com a convidada Janielle Jondral Terapeuta Ocupacional brasileira que vive na Austrália e que é especialista no modelo PAC ( Abordagem positiva no cuidado) criado pela Teepa Snow.Reage ou Responde às necessidades não atendidas das pessoas a quem presta cuidados?
What's your plan, a podcast dedicated to offering DC residents and their families resources and solutions to one of society's biggest challenges, the caregiving and long term care crisis. For more information click the programs tab and the what's your plan page at www.dcradio.gov.
On this heartfelt episode of The Manchester Living Podcast, host Brian Levy sits down with Teepa Snow, a world renowned dementia care expert, and Sandi Levy, Director of Nursing at Manchester Care Homes and Cambridge Caregivers, to explore the deeply personal and often challenging journey of elder care and caregiving. Together, they share insights into supporting loved ones living with brain change while preserving meaningful connections amidst life's changes. The conversation touches on managing caregiver burnout, fostering effective communication, addressing anxiety and depression, and embracing the complexities of brain change and care with compassion and understanding.
Research shows that 1 in 4 Americans over the age of 50 are now caregivers. It certainly hits home for this podcast. This week we invited Teepa Snow on the show to talk about caregiving. Teepa is a dementia care expert who founded Positive Approach to Care (PAC). We talk about what dementia is and how to help the dementia patient while still taking care of ourselves. It is a fine line to walk and Teepa offers great advice. Show Notes/Links: www.hotflashescooltopics.com Giveaway: 12/2-12/6: https://www.subscribepage.com/giveaway2024 Teepa Snow: www.teepasnow.com FOLLOW US ON: Instagram: https://www.instagram.com/hotflashesandcooltopics/ Youtube: https://www.youtube.com/channel/UC6ssWfO0qeZYEIs6TzrKBHQ Facebook: https://www.facebook.com/groups/657557054765087 Want to Leave a Review for Hot Flashes and Cool Topics? Here's How: For Apple Podcasts on an iPhone or iOS device: Open the Apple Podcast App on your device. Click on the “search” icon Type into the search bar “Hot Flashes and Cool Topics” and click on the show Towards the bottom, look for “Ratings and Reviews” Click on “Write a Review” and leave us your thoughts and comments! For Apple Podcasts on a computer: On the Apple Podcasts website, go to the search bar and type “Hot Flashes and Cool Topics” After clicking on the show, find the “Listen on Apple Podcasts” button and click on it The “Hot Flashes and Cool Topics” podcast should open on the Apple Podcasts application Keep scrolling on the page until you see “Ratings and Reviews” Click on “See All” If you want to give us a five-star rating, hover over the empty stars! If you want to leave your thoughts and comments, click on “Write a Review”!
Brain Talk | Being Patient for Alzheimer's & dementia patients & caregivers
Positive Approach to Care founder and dementia care expert Teepa Snow returns to Being Patient Live Talks for “Ask Teepa Anything” to answer Being Patient readers' questions in real-time. Snow, MS, OTR/L, FAOTA, is an Occupational Therapist with over forty years of clinical and academic experience. Her experiences led her to the development of the GEMS® States of Brain Change and the Positive Approach® training strategies. Her company, Positive Approach to Care® (PAC), provides online and in-person education and products to support those living with brain change. She also founded the Snow Approach Foundation, a nonprofit organization based in Hillsborough, North Carolina.
Dementia care is shifting, increasingly focusing on empathy and compassion toward loved ones with dementia. Senior Care Authority invites expert dementia care educator Teepa Snow onto their Boomers Today podcast to share her insights on this newer approach. Listen to the full episode at https://www.seniorcareauthority.com/blog/teepa-snow-on-the-past-present-and-future-of-dementia-care/ Senior Care Authority City: Petaluma Address: 755 Baywood Drive Website: https://www.seniorcareauthority.com Email: mmarston@seniorcareauthority.com
Teresa Youngstrom is a seasoned Registered Nurse and Dementia Specialist. She has almost 40 years of Clinical and Leadership experience. She became intensely focused on Memory Care when it touched her own family. Teresa is a PAC Certified Independent Trainer under Teepa Snow. Her passion for improving the lives of people living with Dementia led her to start her own business in 2018, “A Better Approach to Memory Care”, where she provides staff training, family consulting, professional education and a podcast called, “Memory Care with Teresa Youngstrom.”. https://www.seniorcareauthority.com/resources/boomers-today/
What's your plan, a podcast dedicated to offering DC residents and their families resources and solutions to one of society's biggest challenges, the caregiving and long term care crisis. For more information click the programs tab and the what's your plan page at www.dcradio.gov.
Teresa Youngstrom is a seasoned Registered Nurse and Dementia Specialist. She has almost 40 years of Clinical and Leadership experience. She became intensely focused on Memory Care when it touched her own family. Teresa is a PAC Certified Independent Trainer under Teepa Snow. Her passion for improving the lives of people living with Dementia led her to start her own business in 2018, “A Better Approach to Memory Care”, where she provides staff training, family consulting, professional education and a podcast called, “Memory Care with Teresa Youngstrom."https://www.seniorcareauthority.com/resources/boomers-today/
In this episode of "Gather Darlings," host Carrie, known as Dementia Darling, honors National Family Caregivers Month by shining a light on the incredible work of dementia caregivers! Carrie shares a comprehensive list of essential resources for dementia caregivers, including the Alzheimer's Association, Teepa Snow's Positive Approach to Care, and the Family Caregiver Alliance, among others. These organizations provide vital support, educational programs, and community connections that can make a significant difference in caregivers' lives. The episode also addresses mental health and self-care, encouraging caregivers to join support groups, seek professional help when needed, and practice mindfulness techniques. Carrie highlights the importance of respite care as a crucial support system, outlining various options such as in-home services and adult day centers that allow caregivers to recharge. Additionally, practical tips for daily caregiving are shared, including establishing routines and utilizing tools to enhance communication and quality of life. Tune in to this episode to gather insights, resources, and encouragement as we celebrate the dedication of dementia caregivers everywhere. Essential Resources for Dementia Caregivers 1. **Alzheimer's Association** - [alz.org](https://www.alz.org/help-support/resources): Offers a 24/7 helpline, support groups, and educational programs. 2. **Teepa Snow's Positive Approach to Care** - [teepasnow.com](https://www.teepasnow.com): Provides innovative dementia care training and resources. 3. **Be Light Care** - [belightcare.com](http://www.belightcare.com): Offers dementia care consulting and education. 4. **Roon Dementia** - [roon.com](http://www.roon.com): A platform that provides resources for dementia care. 5. **Family Caregiver Alliance** - [caregiver.org](https://www.caregiver.org): Provides comprehensive support and information for family caregivers. 6. **AARP Caregiving Resource Center** - [aarp.org/caregiving](https://www.aarp.org/caregiving/): Offers tools and information to help navigate the caregiving journey. Mental Health and Self-Care Resources 1. **Zen Caregiving Project** - [zencaregiving.org](https://zencaregiving.org): Offers mindfulness-based support for caregivers. 2. **Steadii App** - [steadii.com](https://www.steadii.com/): A mobile app designed to help caregivers manage their responsibilities. 3. Leeza's Care Connection for support groups https://leezascareconnection.org/home Respite Care Resources 1. **ARCH National Respite Network and Resource Center** - [archrespite.org](https://archrespite.org): Provides resources to help find respite care options in your area. 2. Area Agencies on Aging in your local area (google this for your location) 3. HFC www.wearehfc.org for respite grants and support groups Practical Tools and Engagement Resources 1. **Care Mobi App** - A mobile app for caregiver organization and reminders. 2. **Zinnia TV** - A platform for engagement activities tailored for seniors. 3. **Nana's Books, Mirador, SingFit, Music with Alexis**: Various resources for engaging activities with individuals living with dementia. Zinnia TV- www.zinniatv.com Nana's Books- www.nanasbookseries.com Mirador Magazine- www.miradormagazine.com Singfit http://www.singfit.com Music with Alexis- www.musicwithalexis.com CareMobi app https://nursing.nyu.edu/w/caremobi Additional Support **Navigating the World with Your Aging Loved One Podcast** - Hosted by Nicole Will, this podcast empowers older adults and caregivers with insights throughout the aging journey. More information can be found at [willgatherpodcast.com](http://www.willgatherpodcast.com). We'd love for you to subscribe, rate and review! Follow us on Instagram HERE and Join our Facebook Group HERE. Come as you are! We are not medical professionals and are not providing any medical advice. If you have any medical questions, we recommend that you talk with a medical professional of your choice. willGather has taken care in selecting its speakers but the opinions of our speakers are theirs alone. Thank you for your continued interest in our podcasts.
Send us a textJoin us for an enlightening conversation with Teepa Snow! A pioneering force in dementia care and the creator of the Positive Approach. With her deep roots in occupational therapy, Teepa has reshaped how we perceive and engage with individuals living with dementia, focusing on empathy and personalized interaction. This episode offers invaluable insights for caregivers and professionals, underscoring the critical importance of relationship-building and adapting techniques to meet individuals where they are.We discuss the challenges of addressing agitation and distress in senior living spaces, advocating for curiosity over judgment. The conversation highlights the need for proactive communication and engagement to manage expectations and prevent crises, while also recognizing the burdens faced by caregivers. Exploring the intersection of technology, creativity, and dementia care, we emphasize that technology should complement rather than replace human interaction. Teepa shares her thoughts on the importance of adaptability and understanding individual needs when integrating technological tools, such as music and TV, into care practices. We also delve into preparing for a career in dementia care, stressing the importance of flexibility, creativity, and systemic changes in caregiver training. Support the show
Talking about dementia in a more natural and compassionate way, as Teepa Snow does, can make a huge difference for both people living with dementia and those who care for them. Teepa's “Positive Approach to Care” is all about meeting people where they are, focusing on what they can do, and building a supportive environment that respects their experience. Her techniques are designed to keep communication as comfortable and genuine as possible, rather than focusing on limitations. Teepa's resources, such as the videos and tools on her website, are also helpful for anyone wanting to understand dementia better—whether it's for themselves or a loved one. Her approach might offer you insights and techniques that make communicating and understanding dementia feel less intimidating and more hopeful. #PositiveApproachToCare #TeepaSnow #DementiaAwareness #LivingWithDementia #DementiaSupport #UnderstandingDementia #DementiaJourney #CaregiverSupport #DementiaAcceptance Website: www.teepasnow.com Facebook: @Teepa Snow) Instagram: @teepasnows_pac LinkedIn: @Teepa Snow's Positive Approach to Dementia Care YouTube: @teepasnowvideos
This ENCORE episode features host Mary Anne Oglesby-Sutherly and Teepa Snow, discussing honestly about hospice and dementia. Teepa's "The Positive Approach to Care" (PAC) is by far the greatest influence for Mary Anne's vision and work-ethic, otherwise known as "The Veranda Ministries." www.verandaministries.org
In this episode on the Living with Alzheimer's podcast, Christoph interviews Amanda Bulgarelli, Chief Operations Officer and Master Trainer for Positive Approach to Care, an organization focused on creating a more positive dementia care culture.Amanda is the daughter of Teepa Snow, a nationally known dementia care specialist who founded the Positive Approach to Care (PAC) organization to help caregivers be more successful by using Teepa's therapeutic approaches and care techniques.Christoph and Amanda discuss the issues that PAC is focused on solving for families facing dementia and dementia care needs. They talk about some care techniques PAC teaches, how caregivers can be more successful when they better understand how to enter the world of the person living with dementia, and how families can engage PAC to help them navigate the caregiving landscape.They also discuss signs that may indicate cognitive decline versus normal aging, as well as two cognitive screening tests that individuals can use to help detect cognitive changes early. Those two tests are the Animal Fluency Test and the Trail Making Test.For more information about Positive Approach to Care and the resources they offer caregivers and families dealing with the impacts of dementia, please visit teepasnow.com or call 877.877.1671.
Teepa Snow is one of the world's leading advocates and educators for anyone living with dementia or other forms of brain change. Teepa is an Occupational Therapist with over forty years of rich and varied clinical and academic experience. Her philosophy is reflective of her education, work experience, medical research, and first-hand caregiving experiences. Her advocacy efforts led her to the development of the GEMS® State Model for understanding the progression of dementia and changes in abilities. She also created the Positive Approach to Care® training strategies, which are effective techniques for anyone seeking to optimize care and support for those living with brain change. https://www.seniorcareauthority.com/resources/boomers-today/
"You've already asked me that!"Teepa Snow joins us on the Aging Today Podcast for a lively discussion on responding to repetitive questions and challenging behaviors from those living with dementia. Her unique style and positive approach will help you better understand dementia and how it affects your loved ones. Teepa believes that “Rewiring our own perceptions, attitudes, communication strategies, actions, and responses, provides the shift that promotes change for the others around us."Learn more about Teepa Snow and Positive Approach to Care: https://teepasnow.com/This is a special repeat episode by popular demand! Original airdate: 10/03/22
In this episode on the Living with Alzheimer's podcast, Christoph interviews licensed master social worker Megan Cowan about her work as Social Work Team Lead for Corewell Health Hospice & Palliative Care West Michigan.Megan describes how the caregiving journey changes during late-stage Alzheimer's and how she and her team of medical social workers help families and individual caregivers navigate the shifting care needs.Christoph and Megan discuss recommendations for environmental changes to address safety needs related to restricting access, bathing, toileting, and diet.Christoph stumbles over the word comorbidities ... other medical conditions that can coexist with a person's dementia diagnosis. Megan explains how these other conditions can significantly impact caregiving needs, and she outlines the services hospice provides that can help with the unique needs of a person in late-stage Alzheimer's.Lastly, Megan describes what caregivers should prioritize for themselves regarding self-care as the person they're caring for progresses into later stages of dementia. And she recommends that caregivers use techniques from Teepa Snow and resources available from Alzheimer's Association.To learn more about Corewell Health Hospice & Palliative Care West Michigan, you can contact them at 616.391.4250.
The Caregiver's Journal hosted by Lance A. Slatton with Cindy (PT) & Christina (ST) Hardin-Weiss. The Caregiver's Journal is the show where we are sharing the caregiving experiences, stories, and wisdom of family caregivers. Chapter 5 - "Finding Support": In this journal entry, we welcomed Laurette Klier who shared her caregiving journey and how she is "Finding Support". About Laurette Klier: Laurette Klier is the founder of NANA'S BOOKS, a treasury of art and literature pairings in approachable, adaptive formats, mindfully designed to meet the needs of people living with brain change and their communities of care. A career educator, Laurette saw that her mother-in-law, ‘Nana Mary', who was living with Lewy body dementia had entirely abandoned her daily newspapers and large print books, and decided to try her hand at creating books that Nana could read and enjoy once again. Because NANA'S book was such a hit, Laurette kept making more books, with topics requested by neighbors and friends who were also living with cognitive change. Based in nostalgia, the resonant themes struck such a chord with elders in life review, a common thread began to appear: books that honor identity and give elders the visual and auditory cues they need empower them to reminisce and converse with ease. Now with 40 books in print and digital libraries, Laurette is focused on getting the word out to families, communities, and libraries seeking to re-ignite lifespan reading and unite generations. Laurette holds master's and undergraduate degrees from Boston College, in education and speech communications. She is a Certified Dementia Practitioner (CDP) certified senior advisor (CSA), certified in individual Cognitive Stimulation Therapy (iCST) and Habilitation Therapy, and is finishing up her Engagement Leader Certification with Teepa Snow's Positive Approach to Care. NANA'S BOOKS have received a 2021 Maude's Award for Innovation in Making Connections, a 2023 National Service to Seniors Award from CSA, and a 2023 National Mature Media Award for Innovation in Digital Resources for Caregivers. About Cindy (PT) & Christina (ST): Cindy graduated in 1992 with a Master's Degree in Physical Therapy from Washington University in St Louis, MO. The majority of her career has been spent in Home Healthcare. She is passionate about helping people maintain their independence, especially when it makes a difference in their ability to remain in their homes. Christina graduated from Eastern Illinois University with a Master's degree in Communication Disorders & Science. She spent most of her career treating patients in skilled nursing facilities. She enjoys working with individuals who have dementia and educating their families. She also likes helping people who have difficulty eating, chewing, and swallowing due to illness or disease. Cindy and Christina are the founders of Adaptive Equipment Caregiving Corner (AEC). Visit the Official Site for Adaptive Equipment Caregiving Corner (AEC): https://adaptiveequipmentcorner.com/ About Lance A. Slatton: Lance A. Slatton is a dedicated Writer, Author, Influencer, and seasoned Healthcare professional with a rich background spanning over 20 years in the healthcare industry. As a beacon of knowledge and support in the realm of senior care, Lance's journey is not just a career but a calling to make a meaningful difference in the lives of families, caregivers, and their loved ones as they navigate the complexities of long-term care. Lance was named a "50 Under 50" in 2023 by the NYC Journal. Lance's show All Home Care Matters has won multiple awards for its advocacy and impact in helping caregivers and those in the long-term care space. Connect with Lance A. Slatton: Official Website: https://www.lanceaslatton.com
Dementia practitioner Mary Anne Oglesby-Sutherly is on a mission to transform the landscape of dementia care. As co-founder of Veranda Ministries, a 501(c)3, Mary Anne has spent two decades telling the stories of people dealing with dementia. Supporting dementia caregivers is her gift, and helping them to remember their person's legacy is a top priority. Mary Anne got her start as a family practice nurse, and is now a Certified Dementia Practitioner as well as holding a triple certification as a PAC trainer, consultant, and coach in Teepa Snow's “Positive Approach to Care” (PAC). As the host of the highly acclaimed podcast, “Aging Angst and Alleluias,” Mary Anne provides invaluable support, education, and encouragement to care partners navigating the intricate journey of dementia care. The care Mary Anne and her team provide through Veranda Ministries recalls the personhood of their patients, validating who they are and promoting their dignity. What an amazing work and life legacy Mary Anne is creating for herself and her family. Here's how you can connect with Veranda Ministries: www.theverandaministries.org Proactive Perspective in Dementia Care Facebook: https://www.facebook.com/profile.php?id=61553996411093 Veranda Ministries Facebook: https://www.facebook.com/TheVerandaMinistries Veranda's Hidden Heroes Private Support Group on Facebook. https://www.facebook.com/groups/1851833391499391 Listen to the Aging Angst and Alleluias podcast here. Find all the resources that Barbara Karnes has to offer at bkbooks.com. Purchase the End of Life Guideline Series Bundle here. Find Barbara's new booklet Always Offer, Never Force: Food at the End of Life here. Read Barbara's blog here. Connect with Barbara Karnes on social media: Facebook Insta LinkedIn Twitter Pinterest YouTube Order your copies of The Hospice Care Plan: A Path to Comfort here, now available in English and Spanish! Check out the free library of video tutorials from the creators of The Hospice Care Plan hospice nurses Nancy Heyerman and Brenda Kizzire here. Read more about Nancy and Brenda and their mission to improve hospice care here. Find Odonata Care on social media: Facebook YouTube IG TikTok Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care you're already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com. Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.
What steps can we all take to protect our brain health? Dementia Care Expert Teepa Snow says there are many, including getting a baseline cognitive test.
Conscious Caregiving with L & L is "Tackling the Tough Conversations." The topic of this episode is on "Legalities & Seniors" and features an All-Star Panel. Mary Farquhar - CEO of Roger Fisher's Care: Mary Farquhar started as a colleague to her husband, Roger Fisher when he was diagnosed with Mild Cognitive Impairment in October 2018. As Roger's disease progressed to Alzheimer's, Mary reluctantly promoted herself to CEO of Roger Fisher's Care. Attorney Ramsey Bahrawy: Attorney Ramsey Bahrawy has 43 years experience as an Estate Planning and Elder Law Attorney. During that time he has advised countless clients (individuals and families) in both simple sophisticated estate planning strategies. He also advises families with special needs, whether children or adult, on estate planning matters. Attorney Bahrawy represents elders and caregivers to plan for future or, in some circumstances, an immediate need for institutional medical care. In this regard, Attorney Bahrawy assists elders in protecting assets in order to qualify for Medicaid, making or adjusting estate plans such as Wills, Trusts, and Advance Directives, administering estates, guardianship of elderly persons, and financial elder abuse. Attorney Bahrawy is a former member of the National Academy of Elder Law Attorneys Deborah Snyder – Care Partner for Her Husband and Aging & Disability Resource Center Specialist: Deborah Snyder is a Care Partner in her husband's care who is experiencing brain change with Behavioral variant Frontotemporal Dementia (BvFTD). He was diagnosed in 2019, and life changed. She is a Certified Independent Consultant with Positive Approach to Care, Teepa Snow, and has worked in the arena of senior care and aging resources since 2017. Deborah presently works for North Star Counsel on Aging as an Aging & Disability Resource Center (ADRC) Specialist. Lance A. Slatton and Lori La Bey Co-Host and Produce Conscious Caregiving with L & L. Visit their website at: https://consciouscaregivingll.com/ To learn more about Lance A. Slatton and Lori La Bey you can visit their websites. Connect with Lance A. Slatton: Official Website: https://lanceaslatton.com/ Official Website for All Home Care Matters: https://www.allhomecarematters.com Connect with Lori La Bey Official Website: https://alzheimersspeaks.com/ Official Dementia Map Website: https://www.dementiamap.com/
We all face obstacles and journalist Tamron Hall has had her fair share. Hear what she's learned about the importance of open and honest communication to overcome them.
As the number of individuals grappling with dementia continues to rise globally, understanding and empathizing with their unique challenges has never been more crucial. Join us as we delve deep, exploring strategies, experiences, and the transformative power of genuine connection, and partnering with dementia patients instead of doing things for them.Meet Teepa SnowRenowned as a beacon in the world of dementia care, Teepa Snow stands as the driving force behind "Positive Approach to Care," an organization that's revolutionizing dementia care across over 30 countries. With 40+ years of experience as an occupational therapist, Teepa's passion and expertise shine through her work, guiding caregivers and families alike. In this episode, gain invaluable insights from Teepa on caregiving challenges, the magic of proprioceptive input, and personal anecdotes that promise to touch your heart. Don't miss this enriching conversation! What's Next?What are your views, comments, or questions on dementia, or caring for someone with dementia? Share them with us at info@seniorityauthority.org! Stay ConnectedGet in touch with our host Cathleen Toomey on LinkedIn.You can also find Seniority Authority on Facebook, on Instagram, or you can connect with us on our website!Subscribe to our show on Apple Podcasts, Spotify, or anywhere you get your podcasts.
This episode with guest, Gay Gingrich, RN, BSN, and host Mary Anne Oglesby-Sutherly, shares how both women met through their studies with Teepa Snow's “Positive Approach to Care.” The discussion begins with two new friends with shared interests and passion for those with dementia as well as Gay's obvious love of her work as a Geriatric Psych Nurse. Gay's approach to caring for those living with dementia is that of relationships, compassion, and a different perspective of care. She discusses how she believes it's a better approach when these principles are adhered to. Gay's faith is of utmost importance to her daily walk and the care given to her patients. It's an unwavering belief that there is a better more compassionate way to care for and give hope to families along with those living with dementia. There is a much better way to help those with no voice in today's society. We must all come together and seek that better way. www.verandaministries.org
Teepa Snow, MS, OTR/L, FAOTA, is an Occupational Therapist with over forty years of rich and varied clinical and academic experience. Her experiences led her to the development of the GEMS® States of Brain Change and the Positive Approach® training strategies. Her company, Positive Approach to Care® (PAC), provides online and in-person education and products to support those living with brain change. She also founded the Snow Approach Foundation, a nonprofit organization based in Hillsborough, North Carolina. Teepa presents with extraordinary expertise and humor to audiences throughout the world. After several former podcast guests spoke so highly of Teepa Snow and her Positive Approach to Care, I invited her to be a guest on the podcast. In this episode we hear directly from Teepa including her own caregiving story. When we get curious about the actions, behaviour and communication of a loved one living with dementia we can use the information they provide to support them where they need support. By getting curious, things can change. Check out Teepa's website for great information; and her YouTube channel for videos addressing specific situations.
Karen Straw was born in Massachusetts and considers herself geographically challenged, having lived in Colorado, Arizona, Texas, Michigan, Wisconsin, the Marshall Islands in the South Pacific and now calls Utah her home. Karen graduated with her Master's degree from University of Utah in Speech Language Pathology. She has been working with adults experiencing brain changes her entire career as a Speech Therapist. Karen is a Certified Independent Consultant and Trainer with Teepa Snow's Positive Approach to Care® and a Certified Trainer with the National Council of Certified Dementia Practitioners®. In addition to these credentials, she is also a caregiver for her father who recently received a diagnosis of dementia. Karen is passionate about the topic of dementia and provides consulting and education for individuals and families impacted with this disease.Kyle also discusses an article on how to maintain and gain muscle after 60: https://www.msn.com/en-us/health/other/how-to-maintain-and-even-gain-muscle-after-60/ar-BB1iHUag?ocid=hpmsn&cvid=fdafe4b3b45d427a8f54cd68a8b83ef3&ei=22
Brain Talk | Being Patient for Alzheimer's & dementia patients & caregivers
In this live-streamed Q&A with Positive Approach to Care founder and dementia care expert Teepa Snow, she answered Being Patient readers' questions in real-time. Snow, MS, OTR/L, FAOTA, is an Occupational Therapist with over forty years of clinical and academic experience. Her experiences led her to the development of the GEMS® States of Brain Change and the Positive Approach® training strategies. Her company, Positive Approach to Care® (PAC), provides online and in-person education and products to support those living with brain change. She also founded the Snow Approach Foundation, a nonprofit organization based in Hillsborough, North Carolina. Listen to this live talk to get your questions about dementia caregiving answered!
At the 2023 Positive Approach to Care conference, I had the opportunity to interview Carolyn Barnes, with Scrunch Cloth. Have you wondered how a simple change in our daily routine items can significantly enhance the quality of life for many? Today we explore an innovation that makes the seemingly mundane tasks of daily living safer, easier, and more inclusive. We're diving into a product that's redefining personal care for individuals across a spectrum of needs. My guest today is Carolyn Barnes, a seasoned Certified Occupational Therapist Assistant with a passion for empowering individuals through effective, personalized care. Carolyn's expertise in adaptive equipment along her with father, inventor Paul Barnes, has led to the creation of a revolutionary product that stands out in simplicity and functionality: the Scrunch Cloth. Unlike any ordinary washcloth, Scrunch Cloth's design is a testament to the power of thoughtful innovation in enhancing daily life for those with physical, mental, or visual disabilities, as well as their caregivers. Today, we explore the journey behind Scrunch Cloth, from its inception to becoming an indispensable tool in rehabilitation and maintenance therapies. We talk about its unique "No Grip, No Drop" design, how it assists individuals dealing with conditions like dementia, Alzheimer's, arthritis, and more, and the impact it has on fostering independence and dignity. Join us as we unfold the story of Scrunch Cloth, a simple yet transformative solution for daily living. This episode is powered by Seni, which provides support and products for those caring for their loved ones. Learn more at www.scrunchcloth.com *This episode is brought to you by Gigi Betty co. A boutique gift shop raising awareness and funds for caregivers and care partners. Show now at www.gigibettyco.com. Use the special code WILLGATHER20 for 20% off your order- Just for our podcast listeners! We are not medical professionals and are not providing any medical advice. If you have any medical questions, we recommend that you talk with a medical professional of your choice. willGather has taken care in selecting its speakers but the opinions of our speakers are theirs alone. Thank you for your continued interest in our podcasts. Please follow for updates, rate & review! For more information about our guest, podcast & sponsorship opportunities, visit www.willgatherpodcast.com
At the 2023 Positive Approach to Care conference, I had the opportunity to interview Nikki Jardin and Tave Fasce, Founders of Mirador Magazine. Today we explore how a simple act, like reading a magazine, can become a cherished lifeline. A few years ago, Nikki's life took a poignant turn when her aunt was diagnosed with Young-Onset Alzheimer's at 63. Stepping up as her primary guardian, Nikki navigated the complexities of care with love and dedication. Her aunt, a curious soul with a passion for magazines, particularly about animals and science, started facing challenges with reading – a cherished activity slowly being stripped away by the disease. Nikki, sharing a professional bond in writing with her aunt, saw an urgent need for accessible reading material for those living with dementia. Driven by this need, Nikki embarked on a journey to create what is now Mirador Magazine. Alongside Tavé Fascé, co-founder and a graphic designer with an eye for inclusive design, they crafted a magazine that's easy to read and enjoy, designed specifically for individuals with changing brain conditions. It took 18 months of dedicated research and development to prepare their first publication, with a goal to serve not just a niche community but to enhance interactions and connections among families facing similar challenges. Mirador, named as a tribute to Nikki's late Aunt Sharron, a Spanish speaker and explorer of their family's heritage, symbolizes a lookout or vantage point. It's a fitting metaphor for a magazine that offers a window to the world for those whose cognitive abilities are changing. As we discuss Mirador's journey, its impact, and its future, we invite you to join us in this heartwarming and enlightening conversation. A shoutout to Carrie Alberts for recommending we meet these incredible women. This episode is powered by Seni, which provides support and products for those caring for their loved ones. Learn more at www.miradormagazine.com *This episode is brought to you by Gigi Betty co. A boutique gift shop raising awareness and funds for caregivers and care partners. Show now at www.gigibettyco.com. Use the special code WILLGATHER20 for 20% off your order- Just for our podcast listeners! We are not medical professionals and are not providing any medical advice. If you have any medical questions, we recommend that you talk with a medical professional of your choice. willGather has taken care in selecting its speakers but the opinions of our speakers are theirs alone. Thank you for your continued interest in our podcasts. Please follow for updates, rate & review! For more information about our guest, podcast & sponsorship opportunities, visit www.willgatherpodcast.com
Episode 46 from the #agingangstandalleluiaspodcast, featuring host Mary Anne Oglesby-Sutherly and Teepa Snow, is a candid and vulnerably honest dialogue about hospice and dementia. The hunger for knowledge to help others began with Mary Anne's desire to experience Teepa and The Positive Approach to Care (PAC) Team, bringing it to fruition, for without this team, there would be no Veranda Ministries. www.verandaministries.org
At the 2023 Positive Approach to Care conference, I had the opportunity to interview Allyson Schrier, co-founder of Zinnia Technologies. This company was established in 2019, inspired by Allyson's experiences as a dementia family caregiver. Addressing the lack of engaging and digestible TV programming for people living with dementia, Allyson collaborated with a former Apple designer, known for the 'Memories' product. Together, they developed an app for connected TVs and a mobile app, providing a library of over 200 videos. These serve as non-pharmacological tools to foster connections, alleviate anxiety, and assist with daily living activities. Allyson and I have also recorded a podcast, which I'll include in our episode description for further listening. It's always a pleasure to reconnect with her and share updates. Our discussion highlights why the organization is so significant to both of us, and the impact it has had on our lives. We also give a shout-out to Jimmy Zollo and discuss the collaboration between Joe & Bella and Zinnia. We also talk about Allyson's journey as a family caregiver and discuss the appropriate timing for placing a loved one in a care community, including relevant questions to ask and the importance of supplemental training and education. Spending time with Allyson is always enriching, and it's an honor to share our conversation. This episode is powered by Seni, which provides support and products for those caring for their loved ones. Learn more at www.zinniatv.com Listen to our previous episode Flourishing Together: Community and Innovation in Dementia Care HERE. *This episode is brought to you by Gigi Betty co. A boutique gift shop raising awareness and funds for caregivers and care partners. Show now at www.gigibettyco.com. Use the special code WILLGATHER20 for 20% off your order- Just for our podcast listeners! LISTEN NOW: Apple Podcasts, Spotify & on your favorite podcast platform. are not medical professionals and are not providing any medical advice. If you have any medical questions, we recommend that you talk with a medical professional of your choice. willGather has taken care in selecting its speakers but the opinions of our speakers are theirs alone. Thank you for your continued interest in our podcasts. Please follow for updates, rate & review! For more information about our guest, podcast & sponsorship opportunities, visit www.willgatherpodcast.com
With relationship-based approach for individuals with dementia, human touch plays an important role in promoting overall well-being. There's nothing quite like a hug or holding hands to promote a physical relaxation response. It's known to reduce levels of cortisol, a hormone released during times of stress. And there's no difference between those with or without dementia in that response. The Veranda Ministries offers caregivers the role of "Second Family", as each day, clients are treated with great care and personal attention. When one of the Veranda "chosen" passes on, it's not unlikely that the remaining friends and staff also go through their own kind of grief. Much like Miss Jane, Yvonne and Ricky, you will hear the heart-felt journey that each one took, as Mary Anne Oglesby-Sutherly tells their moving stories. Caregivers need aftercare too. www.theverandaministries.org
Recording this bonus episode with the amazing Carrie Aalberts (aka the Dementia Darling) was so much fun! We recorded it live from the 2023 Positive Approach to Care conference, which was led by Teepa Snow. Her Positive Approach to Care is tackling dementia collectively. Carrie is not only a dear friend of mine but also a valued colleague. She brings immense help, encouragement, and knowledge to the world of caregiving and senior care. With a decade of experience and a master's in gerontology, she truly is the Dementia Darling. She also serves as a care advisor for Eugeria, offering her unique perspective on dignified innovations for such a significant journey. In our conversation, Carrie and I had a lot of fun. Firstly, it was an exciting time because "Dementia Divas," which is the first-ever TV show devoted to dementia caregivers, was being released the same week as our gathering at the Teepa Snow conference. Teepa is part of the dementia divas, along with Dr. Macie Smith. The dementia divas can be found on Saltbox TV and will continue to be featured. We dive into behind-the-scenes details of the recording and discuss how they are reaching and impacting others. We talk about shifting the narrative around dementia care, tackling the hard stuff, and navigating compassion and empathy. We give shout-outs to Vera Music, Stephen Hunt, Relish, Dr. Macie Smith, Saltbox TV, Zinnia, Allyson Schrier, and others. Carrie shares the joy of the first holiday season in the US for Eugeria. It's a reflection of how special they are and the mission they are on, working towards greatly improving the quality of life for caregivers and those living with dementia. We also discuss great, dignified gift ideas for your loved ones. You don't want to miss this conversation. I just love any opportunity I get to talk to Carrie Aalberts. This episode is powered by Seni, which provides support and products for those caring for their loved ones. Learn more at www.dementiadarling.com
On this episode of Manchester Living Podcast, host Brian Levy interviews world-renowned dementia care specialist Teepa Snow. They discuss the importance of understanding and adapting to the needs of individuals with brain change and illustrate effective communication strategies. Teepa shares her personal experiences and expertise, emphasizing empathy and patience in caring for those with brain change. The conversation also explores the challenges faced by caregivers and family members, providing insights on navigating the caregiving journey.http://www.ManchesterLivingPodcast.com
In this episode, we explore the complex issue of challenging behaviors in dementia care. We examine various frameworks for understanding these behaviors, such as the behavioral and psychological symptoms of dementia, the control and connect model, and the distinction between behaviors stemming from symptoms versus underlying causes. We also consider the societal impact on these challenging behaviors and share insights from a case study in our Facebook group. In this episode: 0:00:00 Introduction to Challenging Behaviors in Dementia 0:00:58 Unpacking Challenging Behaviors and Society's Contribution 0:01:40 Welcome to Dementia Caregiving for Families 0:04:53 The Challenges of Dementia Caregiving 0:09:00 A Different Approach to Addressing Challenging Behaviors 0:09:11 Symptom-Based vs. Underlying Cause-Based Approach to Challenging Behaviors 0:11:24 Control and Connect: A Different Approach to Challenging Behaviors 0:14:19 Recognizing the signs of something wrong 0:15:59 Understanding the impact of changes in behavior due to dementia 0:18:39 Changing interactions with a loved one with dementia 0:21:11 Exploring the impact of external factors on behavior changes 0:22:24 Analyzing behavior as a means of control or connection 0:25:48 Understanding the importance of allowing time for the brain to process 0:27:21 The PEACE Framework: Person-Centered Approach to Dementia Care 0:28:30 Workshop Details and Introduction As someone deeply committed to enhancing dementia caregiving, I acknowledge the obstacles that caregivers face within the healthcare system. To ease this burden, I'm crafting a seminar that tackles dementia management from a healthcare provider's angle, drawing from extensive research into challenging behaviors. In discussing intervention strategies, we touch on medication management but advocate for a more comprehensive approach that seeks to understand and address the root causes, always keeping the individual's well-being at the forefront. Medication should be a considered option, but not the go-to solution. We then examine the symptom-based method, which zeroes in on behaviors directly linked to the brain's physical changes, such as hallucinations. Equally crucial is identifying cause-based behaviors that may arise from feelings of fatigue, being overwhelmed, or sensory overstimulation. The intriguing control and connect concept introduced by Teepa Snow sheds light on why certain behaviors may emerge—as attempts to either exert control over the environment or to seek connection with others. I reflect on society's role in defining "challenging" behaviors and the realization that our responses can exacerbate the discomfort and confusion experienced by those with cognitive impairments. From my personal journey with my father, I share the profound effect of embracing his repetitive conversations without correction, contributing to his sense of calm and security. The narrative continues with an insight into my mother's care, where I discovered that it was my response to her behavior, rather than the behavior itself, that created anxiety. A transformation in how I engaged with her led to remarkable improvements. A related anecdote from our Facebook community illustrates how interpreting a loved one's behavior through the lens of control or connection can open pathways to understanding and adjusting care strategies. As the brain changes, behaviors that were once manageable can trigger extreme reactions. The podcast concludes with practical tips for family caregivers to mitigate these behaviors. I host a monthly workshop offering the "peace framework," which includes person-centered care, tailored environments, and engaging activities. The workshop also emphasizes the caregiver's role in these dynamics and provides evidence-based guidance. We are thankful for the Success Seekers who accompany us on this path of aiding our loved ones with dementia. Your involvement is invaluable, and we invite you to contribute reviews on Apple Podcasts and participate in our Facebook group, Dementia Caregiving for Families. Let's collectively strive to bring serenity and ease to the caregiving experience amidst the challenges of dementia. Enjoy our podcast? Please take a moment to leave us a review on Apple Podcasts and Spotify —it really supports our show! https://podcasts.apple.com/us/podcast/dementia-caregiving-for-families/id1716187550 Are you helping a parent with dementia? The First Thing You Need To Know Is... You Are Not Alone! Join our workshop here: https://dementiacaregivingmadeeasy.com/workshop Join our Facebook Group at: https://www.facebook.com/groups/1301886810018410
Welcome to the first episode of Get to the Root of It! This interview was initially recorded in the fall of 2022 in the Facebook Group, Brain Wellness and Dementia Prevention with Dr. Heather Sandison of Solcere and Marama and Laurel Brennan of RootCauseology.com. We are starting with this episode because it so clearly highlights what this podcast is all about. We look at root causes, share insights and expertise with a heavy dose of hope and love. I hope it helps you and your loved ones in some way. 2:45 Dr. Health Sandison Bio 4:20 Journey: Inspired by Dr. Dale Bredesen but skeptical 5:55 Seeing is Believing: Saw the improvement of patient with severe dementia, MoCA score improved from 2 to 7 in 6 weeks after getting on BHRT, dental health addressed by a biological dentist, began resolving moldy environment, started Ballroom Dancing, got into ketosis 11:45 Clinical trial, ITHNCLR, awaiting peer-review, N=23, completed 6 months of Bredesen Protocol with most receiving benefit and improvement in cognition, the greater the commitment and engagement in protocol, the more benefit observed https://clinicaltrials.gov/ct2/show/N...12:15 Solcere Health Clinic: brain health, ReCode and PreCode report in collaboration with Apollo Health 15:45 Marama: addressing lifestyle in fully supportive residential environment (12 beds) 21:42 Support in implementing Bredesen Protocol via Retreat 23:30 Marama at Home & Benefits of Aging-in-Place; getting more people access to a brain-healthy lifestyle/Bredesen Protocol at home 27:15 Necessity of fall prevention at home 28:46 maramaexperience.com to get on waiting list for residential living 29:40 maramaathome.com for caregiver training course 30:06 Bredesen, The End of Alzheimer's Program Book 30:40 Teepa Snow, Positive Approach to Care 32:00 Best Advice for preventing or reversing cognitive decline: 1.Keto/vegetable heavy 2.Exercise like your life depends on it (strength, cardio, dual task, contrast O2). 3.Optimize sleep 4.Stress reduction 38:10 Hormetic Affect: Increase stress on a complex system to get an adaptive response and increased resilience in the system 42:15 Just-Right Challenge and Occupational Adaptation 48:50 Hope for the future--intergenerational wisdom transfer, Marama-type experience becomes the standard in senior living 51:17 Retreat ideas and plan for Yoga and Brain Health Retreat 2023 in Costa Rica Check out the resources below for more information: Dr. Heather Sandison Resources: https://www.solcere.com/ for Keto diet guide maramaexperience.com to get on the waiting list for residential living in SanDiego, CA or maramaexperience.com/apply to learn more or apply for a room at The Clear Mind Center is Wichita, Kansas maramaathome.com for caregiver training course Laurel Brennan, MOTR/L, RYT Resources: https://www.rootcauseology.com/ for information on Brain Health Services Yoga and Brain Health Retreats Instagram @rootcauseology TikTok @rootcauseology Facebook @rootcauseology and private Facebook Group, Brain Wellness & Dementia Prevention
This week, we discuss tips for keeping our loved ones living with Dementia safe during the Halloween festivities, Tina and Terri answer a listener question, share highlights for our afternoon with Teepa Snow, and welcome to the studio April and her mom Aiko. April and Aiko brought their wonderful energy to the world during COVID with their fun exercise routines. What a fun show! See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
A very difficult episode, but one that surely needs to be told. This situation is one family's struggle with when their loved ones need care in a community setting. It's a hard decision. The word placement strikes fear in their hearts for many reasons. Since the recording of this episode, the Colonel, as you'll hear about, passed away within a few weeks of his placement. To be honest, there are thousands in this country with the same outcome. This is the tragedy of a healthcare system that gives little to no hope or direction when treatment is administered to someone with dementia. There has to be a better way than the massive amounts of medications to “combat bad behaviors and agitation.” People living with dementia and dying from massive amounts of drugs not indicated for dementia need to stop. We need more voices to advocate for those with no voice. It's simply out of hand. This podcast episode makes no apologies for the blunt honest reaction to a system gone bad. It was literally “from dancing to dying”, in less than thirty days for the Colonel. www.theverandaministries.org
Do you know that simple changes in our understanding of sleep and addressing incontinence can drastically improve the quality of life for both caregivers and their loved ones? Today, we're diving into the intricate dance between sleep, incontinence, and how it impacts the quality of life for both caregivers and those they care for. My guest today is Deanna Vigliotta, with a vast 30-year background in healthcare sales and sales management, now with Seni. Their mission is to support, provide resources, and educate caregivers and healthcare professionals through initiatives. Such as supporting programs like Teepa Snow, Alzheimer's and Dementia Resource Center, and many more impactful organizations. A good night's sleep has profound effects on our health, mood, and overall well-being. Beyond just the physiological benefits, undisturbed sleep plays a crucial role in the emotional and psychological health of our aging loved ones. In this delicate balance, caregivers can ensure the best for those they care for while also tending to their own well-being. Join us as we look at understanding the multifaceted impacts of sleep, exploring misconceptions about incontinence, and unveiling strategies to promote restorative rest. With insights from Deanna, we'll explore the profound link between quality sleep and an enriched quality of life. We also have conversation about some of Deanna's favorite people in the industry, explore the incredible initiatives that Seni supports, and share the many ways caregivers can enrich their approach to care, ensuring a holistic balance between physical, emotional, and psychological well-being for both themselves and their loved ones. *This episode is brought to you by Gigi Betty co. A boutique gift shop raising awareness and funds for caregivers and care partners. Show now at www.gigibettyco.com. Use the special code WILLGATHER20 for 20% off your order- Just for our podcast listeners! We are not medical professionals and are not providing any medical advice. If you have any medical questions, we recommend that you talk with a medical professional of your choice. willGather has taken care in selecting its speakers but the opinions of our speakers are theirs alone. Thank you for your continued interest in our podcasts. Please follow for updates, rate & review! For more information about our guest, podcast & sponsorship opportunities, visit www.willgatherpodcast.com
This is part two of Anthony Facello's difficult story. The value of having a POA (power of attorney) is of utmost in any family with a loved one. And if that loved one is suffering from dementia and is a mother of an only child, it's even more imperative. What makes Anthony's story even more tragic is the abuse his mother received from her second husband. Making things worse, the cocktail of meds that were given to Anthony's mother, sent her to a tragic end, when indeed it didn't have to be that way. Sadly, it's not unusual in the realm of care for those with dementia. His mother wasn't afraid to die, and thankfully Anthony knew that his mother was dying. That was obvious. It was the goodbye that was the worst part. Thankfully, host Mary Anne Oglesby-Sutherly walked alongside Anthony with counsel and guidance during his most desperate of times. Listen to the heartache of a family caught up in a broken system, a relationship that on any given day was intense, and a son who found himself in that broken system trying to help find peace for his mom and himself. www.theverandaministries.org
This question, by far, is one of the most triggering questions family members have to respond to. There are so many emotions that spike to the surface when this is asked, and it can swirl us into guilt, doubt, fear, sadness, anger you name it, pretty quickly. If someone is not living with Alzheimer's or another dementia, this usually presents as subtle jabs that can eventually be triggering leading to explosion or argument. The bottom line is, things are where they are for a reason or number of reasons, that are out of our control. Our goal is to let the comments slide, be reassuring, validate the person's emotional response to the situation, generally do our best to not fall into the trigger trap and respond in a loving way. The game changes when the person asking is living with dementia. It's never a one and done conversation. They don't remember asking the question. They're confused about what is going on. We have worked hard to figure out this new living arrangement and get things set up, so it's upsetting when they're repeatedly asking about going home. It's a constant reminder that everything has changed. We desire for them to not ask this because we want to feel a certain way. Of course we want people to feel settled and happy. Under the best of circumstances, a move takes time to feel settled in. When someone is living with dementia this takes an extraordinarily longer amount of time and in my experience, eventually, people do get there and stop asking. Eventually. In this episode I talk about: Keeping perspective on moving. Home may be a feeling more than a geographical place. How to answer the same question a zillion times as if it's the first time they've asked. Remembering they have a brain disease, keeping our energy in check as we're responding. Thinking about the reason behind why they want to go home, it may not be what you're thinking. Offering responses that are temporary and in service to others. How to redirect the conversation. This is a VERY tough time and I want to uplift that you are amazing and doing a great job. Be kind and patient with yourself too. Do what you need to do to take care of yourself, restore yourself, and recharge so you can feel patient during this chapter. www.michelemagner.com Dementia Educators to follow: Teepa Snow: https://www.instagram.com/teepasnows_pac/ Dementia Darling: https://www.instagram.com/dementiadarling/ BeLightCare: https://www.instagram.com/belightcare/ Dementia Careblazers: https://www.instagram.com/dementia_careblazers/ --- Support this podcast: https://podcasters.spotify.com/pod/show/michele-magner/support
There is still no cure for dementia. So what are Teepa Snow's thoughts on recent drug releases that promise to improve points on a scale or to undue cognitive decline? Join us and find out! To learn more about Positive Approach to Care, please visit us at www.teepasnow.com. --- Send in a voice message: https://podcasters.spotify.com/pod/show/dementiacaregivertalkshow/message
Maybe one day, the medical profession will understand and improve the quality of the pieces of the puzzle of dementia. For now, though, the research and emphasis are more about dealing with the symptoms than addressing the cause and management of dementia. Why can we not do more training and improvements with the medical communities' skillset? Many questions need to be addressed. Host Mary Anne Oglesby-Sutherly and producer Sue Duffield share the discrepancies and difficulties of a recent family's despair in treating and diagnosing their loved one. You'll feel their anger, shock, and broken hearts due to a short stay in a Geriatric Psychiatric Facility administering a cocktail of medications. The result was life-threatening and a debilitating brain bleed. Now, the family is facing one of life's hardest decisions. Due to a recent FDA ruling that approved a new medication for agitation for those living with dementia, many experts in the field of dementia are shaking their heads. Why? Because the FDA did not lift the “Black Box Warning" for those living with dementia. This episode will give viewers an insight into this new drug, Rexulti. Counseling and fighting for families has been and will always be the heart of Mary Anne and The Veranda Ministries in Gallatin, TN. Human beings with dementia are just as valuable and important as anyone. There has to be a better way... People's lives are counting on it. www.verandaministries.org
Host, Mary Anne Oglesby-Sutherly and producer, Sue Duffield come right out of the starting gate discussing the hilarity of being hacked and cloned on Facebook! Plus an update on Mary Anne's client whose charges were dropped after being arrested - is a great story with a compassionate ending. There's still the on-going struggle with those who have dementia, and how the system treats these individuals when they make mistakes, but thankfully, the officials in Sumner County, Tennessee, returned dignity to the person and their family. "When a family's back is against the wall while dealing with caregiving, there's no doubt that we make it way too hard", Mary Anne shares. "You don't need a PhD to be kind." Advocacy for yourself also in the medical system is a struggle in of itself without dementia, let alone with it. The 2023 Sumner County Caregivers Conference will be Aug. 4th, 2023 at Rehoboth United Methodist Church in Gallatin, TN. For more information, get on www.verandaministries.org
Allyson Schrier's life took an unexpected turn when her husband was diagnosed with frontotemporal dementia. At the time, he was 47 years old, and their kids were 12 and 15. Like many families, they faced the challenges of caring for their loved one and have a deep desire to help families thrive beyond the diagnosis. My guest today is Allyson Schrier, CEO and co-founder of Zinnia. Allyson is also the recipient of the Maude Awards for innovation in Alzheimer's care and was named a visionary caregiver by caregiving.com. Zinnia was formed in 2019 in response to Allyson's experience as a dementia family caregiver. Allyson joined forces with the former designer of Apple's memory product, and together they created an app for connected TVs and a mobile app that delivers a library of videos functioning as a non-pharmacological tool to create connections, reduce stress, and provide soothing aids to help with daily living activities. In our conversation today, Allyson vulnerably shares her experience as a spouse caregiving for her husband, as well as the factors we should be looking for. We talk about the specific challenges of frontotemporal dementia and the unique dynamics of spouse caregiving. We shed light on early detection, as the average age of diagnosis for this condition falls between 30 and 50 years, but confirmation can often take a long time. We discuss what we should be looking for and Allyson's personal journey in finding hope and managing caregiver burnout, while also covering available resources such as the invaluable expertise of Teepa Snow and the groundbreaking work at the University of Washington's Memory and Brain Wellness Center. We also address the delicate issue of when a loved one wants to keep their condition a secret and discuss the gifts that come from sharing the diagnosis with friends, family, and coworkers. Together, we explore the power of finding community and the impact of research and prevention. Allyson shares about the innovative partnerships they've established, including the collaboration with Touchtown and their participation in the Techstars Future of Longevity Accelerator. This has been a transformative journey for Allyson, and she emphasizes the importance of supporting one another in driving to make a difference in the lives of those living with dementia. Their mission is to ensure that no one faces the challenges of memory loss alone, and Allyson's call, like the name and flower of Zinnia, is that we bloom even in the harshest conditions. Zinnia helps people flourish beyond their diagnosis. Thank you, Allyson, for your work in education and advocacy! Learn more at https://www.zinniatv.com/ *This episode is brought to you by Gigi Betty co. A boutique gift shop raising awareness and funds for caregivers and care partners. Show now at www.gigibettyco.com. Use the special code WILLGATHER20 for 20% off your order- Just for our podcast listeners! We are not medical professionals and are not providing any medical advice. If you have any medical questions, we recommend that you talk with a medical professional of your choice. willGather has taken care in selecting its speakers but the opinions of our speakers are theirs alone. Thank you for your continued interest in our podcasts. Please follow for updates, rate & review! For more information about our guest, podcast & sponsorship opportunities, visit www.willgatherpodcast.com Instagram: @willgather Facebook: WillGather Nicole Will is our host and founder of willGather.
Teepa Snow, founder of the dementia support community Positive Approach to Care and author of “Understanding the Changing Brain: A Positive Approach to Dementia Care,” has spent 40 years working and advocating for those living with dementia and Alzheimer's. She addresses our common misperceptions about the disease and why training is so important when it comes to care — not just for the patient but also for the caregiver. She also discusses building connections between patients and caregivers, and how one person's experience caring for her father helped her build empathy through storytelling.
All Home Care Matters was honored to welcome the founders of Prairie Elder Care & Connectivities as guests to the show to share how they are helping to support, stimulate, and care for loved ones with dementia. Michala Gibson is a Registered Nurse with over 20 years of experience in the senior care industry. She has served as Director of Nursing and Director of Staff Development in local care communities. She is the co-founder of Prairie Elder Care and the Prairie Farmstead where residents live in small group homes on a small farm setting. As a Certified Trainer for Teepa Snow's Positive Approach to Care, Michala works continuously to ensure that the elders in her care have the best opportunities for quality of life. Michala is co-author of the book, Now is Found, highlighting steps to giving back Community, Connection and Control to those living with dementia. Mandy Shoemaker brings 20 years of experience in education prior to her career in dementia care, Mandy has a deep passion for creating programs that spark meaningful engagement. As an elementary school principal, she focused on supporting her families' children. As co-founder of Prairie Elder Care and Connectivities, she has shifted her focus to ensuring a better quality of life for people living with dementia. Through co-authoring the book, Now is Found, Mandy has worked to minimize the stigma of dementia and help people understand how Community, Connection and Control can improve quality of life for those dealing with the effects of dementia.
All Home Care Matters was honored to sit down with Teepa Snow one of the world's leading advocates and educators for anyone living with dementia or other forms of brain change to learn more about her story and to help provide tips and resources for families facing dementia. Teepa is an Occupational Therapist with over forty years of rich and varied clinical and academic experience. Her philosophy is reflective of her education, work experience, medical research, and first-hand caregiving experiences. Her advocacy efforts led her to the development of the GEMS® State Model for understanding the progression of dementia and changes in abilities. She also created the Positive Approach to Care® training strategies, which are effective techniques for anyone seeking to optimize care and support for those living with brain change. As the Education Director of Eastern North Carolina's Alzheimer's Association, she also helped to create the nation's award-winning DVD entitled Accepting the Challenge: Providing the Best Care for People with Dementia. Her user- friendly approaches provide guidance and leadership to national efforts to promote best practices in care. Teepa's company, Positive Approach to Care (PAC), was founded in 2006 and is now collaborating to improve dementia care in over thirty countries worldwide. PAC provides online and in-person services, training, and products to professionals, family members, the lay public, and people living with brain change. Please visit www.teepasnow.com for educational video clips, DVDs, books, information on individual certifications, online support groups, virtual and onsite trainings, or to subscribe to a free monthly newsletter. Teepa presents with extraordinary expertise and humor to audiences large and small throughout the world. Please join in her mission to improve the culture of dementia care, one mind at a time.