Unawareness of one's own illness, symptoms or impairments
POPULARITY
Send us a textLaura Krachun shares her son's harrowing journey with serious mental illness and the systemic failures that criminalize mental health conditions instead of treating them. Her story highlights the urgent need for better policies to support individuals with psychosis and their families.• Laura's son was misdiagnosed with ADHD before eventually being diagnosed with schizoaffective disorder at age 20• Cannabis use potentially triggered or worsened his psychotic symptoms• Despite 16 attempts to get help through ERs and police, the family faced constant rejection from healthcare facilities• Anosognosia (lack of illness awareness) prevented her son from voluntarily seeking treatment• After a violent episode, her son entered the justice system rather than receiving appropriate psychiatric care• Their state's mental health department only offers services to those who volunteer, excluding those with anosognosia• The legal system spent resources on 72 court hearings rather than on treatment• Laura advocates for Assisted Outpatient Treatment laws to bridge the gap between legal and medical systems• Better education is needed for judges, lawyers, and medical professionals about serious mental illnessWe ask that you tell everyone everywhere about Why Not Me? The World, the conversations we're having, and the inspiration our guests give to everyone everywhere that you are not alone in this world.https://tonymantor.comhttps://Facebook.com/tonymantorhttps://instagram.com/tonymantorhttps://twitter.com/tonymantorhttps://youtube.com/tonymantormusicintro/outro music bed written by T. WildWhy Not Me the World music published by Mantor Music (BMI)
Send us a textGeri Clark, Resource and Advocacy Manager at Treatment Advocacy Center, shares her devastating journey of losing her son to severe mental illness while navigating a broken treatment system that wouldn't help until it was too late. She reveals critical gaps in our mental health system and explains how legal barriers, misunderstood medical conditions, and insufficient family support create deadly consequences for those with severe psychiatric disorders.• Son experienced his first psychotic break at 19 while attending college on a debate scholarship• After a four-year struggle with severe mental illness, her son took his own life in 2019• Anosognosia is a neurobiological symptom where the brain cannot perceive its own illness• Current mental health system requires evidence of harm before providing involuntary treatment• Treatment standards based on legal criteria rather than medical need lead to preventable tragedies• Insurance companies create "ghost networks" of mental health providers who aren't actually available• Families are often excluded from treatment decision-making despite being primary caregivers• Prolonged exposure to untreated psychosis causes brain damage and reduces recovery chances• Some states now include psychiatric deterioration in their criteria for involuntary treatment• Treatment Advocacy Center works to develop grassroots advocates pursuing legislative change• Mental health crises receive far less urgent response than medical emergencies like strokesIf you know anyone who would like to tell their story, send them to tonymantor.com and contact us so they can be a guest on our show. Tell everyone everywhere about Why Not Me? The World, the conversations we're having, and the inspiration our guests give to show that you are not alone in this world.https://tonymantor.comhttps://Facebook.com/tonymantorhttps://instagram.com/tonymantorhttps://twitter.com/tonymantorhttps://youtube.com/tonymantormusicintro/outro music bed written by T. WildWhy Not Me the World music published by Mantor Music (BMI)
Send us a textCrystal Fox shares her heartbreaking journey as the mother of a son with schizophrenia and co-founder of Arizona Mad Moms, an organization supporting families of loved ones with degenerative brain illnesses causing psychosis. Through her dual perspective as both a parent and a psychiatric nurse with 30 years of experience, Crystal illuminates the critical gaps in our mental healthcare system.• Anosognosia is a symptom of serious mental illness where individuals cannot recognize they are ill, truly believing their hallucinations and delusions are real• Despite clear signs of severe psychosis, Crystal's son Joshua was repeatedly denied proper psychiatric treatment because he wasn't actively suicidal• Current mental healthcare prioritizes treating suicidal ideation while allowing untreated psychosis, despite psychosis leading to higher rates of suicide and homicide• America has regressed in mental healthcare, removing people from hospitals and placing them in jails or communities without adequate support• Arizona Mad Moms successfully advocated for legislation requiring screening centers to document family information and created training programs on anosognosiaTell everyone, everyone everywhere, about Why Not Me, The World, the conversations we're having and the inspiration our guests give to everyone everywhere, that you are not alone in this world.https://tonymantor.comhttps://Facebook.com/tonymantorhttps://instagram.com/tonymantorhttps://twitter.com/tonymantorhttps://youtube.com/tonymantormusicintro/outro music bed written by T. WildWhy Not Me the World music published by Mantor Music (BMI)
Send us a textA mother and clinical social worker shares her heartbreaking journey navigating the legal system after her high-achieving son developed serious mental illness, revealing how our justice system criminalizes rather than treats mental health conditions. • Licensed independent clinical social worker with 40+ years experience working with vulnerable populations• Her academically successful son began experiencing internal racing thoughts and anxiety despite outward success• Despite parents' professional backgrounds (mother a social worker, father a psychologist), they faced enormous challenges getting appropriate care• Son discontinued medication at 29, leading to psychotic episodes and repeated negative police encounters• Law enforcement and legal system demonstrated lack of training and empathy in handling mental health crises• Massachusetts lacks assisted outpatient treatment programs that could have prevented criminalization• 70-80% of incarcerated individuals suffer from serious mental illness• Anosognosia: neurological condition where individuals lose ability to self-reflect on their behaviors• Advocate working with National Shattering Silence Coalition to change legislation and improve mental health services• Need for systemic change in how police, courts, and society respond to mental health conditionsTell everyone everywhere about Why Not Me, the world, the conversations we're having and the inspiration our guests give to everyone everywhere that you are not alone in this world.https://tonymantor.comhttps://Facebook.com/tonymantorhttps://instagram.com/tonymantorhttps://twitter.com/tonymantorhttps://youtube.com/tonymantormusicintro/outro music bed written by T. WildWhy Not Me the World music published by Mantor Music (BMI)
Send us a textRuth Johnston shares her harrowing journey as the mother of an autistic son who developed schizophrenia, and how this experience drove her to advocate for Assisted Outpatient Treatment (AOT) in Allegheny County, Pennsylvania following a family tragedy.• Ruth's son was diagnosed with autism as a teenager, after she had already been homeschooling him for years• Around age 13, he began showing signs of developing schizophrenia, though it took a decade to recognize the condition• Current laws prevented intervention despite clear evidence of his deteriorating mental state• Expert testimony revealed 5-34% of autistic individuals may develop schizophrenia as adults• Anosognosia (inability to recognize one's own mental illness) prevents many from seeking help voluntarily• AOT programs allow civil courts to mandate treatment before dangerous situations occur• The "black robe effect" of a judge's order can help individuals comply with treatment• Modern medications like Abilify can dramatically improve quality of life without severe side effects• Patient advocacy groups often oppose AOT but don't represent those with severe schizophrenia• Ruth founded AOT4AlleghenyCounty.com to advocate for these needed programsTo learn more about Ruth Johnston's advocacy efforts or to get involved, visit AOT4AlleghenyCounty.com or email AOT4AlleghenyCounty@gmail.com.https://tonymantor.comhttps://Facebook.com/tonymantorhttps://instagram.com/tonymantorhttps://twitter.com/tonymantorhttps://youtube.com/tonymantormusicintro/outro music bed written by T. WildWhy Not Me the World music published by Mantor Music (BMI)
Unraveling Schizophrenia: Dale Walsh's Journey and Advocacy Amazon.com Dewlivelove.net About the Guest(s): Dale Walsh is an accomplished author and mental health mentor who has navigated the challenges of schizophrenia for over five decades. Removed from Dartmouth College in 1975 due to delusions, he has since recovered robustly, mentoring family caregivers of those diagnosed with schizophrenia. Walsh, a prolific poet with over 5,000 poems and several poetry collections on Amazon, also holds a degree from Fairleigh Dickinson University, graduating Magna Cum Laude. His passion extends beyond writing; he's a dedicated New York Yankees fan. Episode Summary: In this enlightening Valentine's Day episode of The Chris Voss Show, host Chris Voss interviews Dale Walsh, a remarkable mentor for family caregivers of individuals living with schizophrenia. Walsh shares his journey from being hospitalized for mental illness in 1975 to his current status as a thriving author and mentor. Transitioning through self-discovery phases, including a self-professed identity crisis in his youth, he has harnessed his experiences to empower others through his books, poetry, and coaching programs. This episode is a blend of personal anecdotes, mental health advocacy, and insights into Walsh's creative endeavors. Listeners are treated to Walsh's eclectic personality as he presents a poem detailing his journey through schizophrenia, emphasizing the moments that defined his path. The conversation touches on a critical but often misunderstood element of schizophrenia—anosognosia, or the inability to recognize one's mental illness—highlighting Walsh's profound understanding of the condition. Furthermore, Walsh introduces his "Do Live Love" methodology, an eight-step program aimed at helping caregivers and families nurture their relationships with those experiencing mental illness, while simultaneously reclaiming their individuality. Key Takeaways: Dale Walsh's life experiences have positioned him uniquely to aid family caregivers in dealing with schizophrenia, emphasizing understanding and communication. Anosognosia—lack of awareness of one's mental condition—is a significant barrier to treatment for individuals with schizophrenia. Walsh's personal journey from mental health diagnosis to empowerment illustrates the potential for recovery and impactful advocacy. The "Do Live Love" mentoring program provides a structured approach to helping families and caregivers interact effectively with those diagnosed with mental illnesses. Comedy and creativity, including poetry and storytelling, are integral to Walsh's approach to sharing his experiences and offering support. Notable Quotes: "Schizophrenia means you're living in a reality that was not conceived on earth." "A delusion is much more difficult to get rid of because it's at the very foundation of your identity and your personality." "The biggest obstacle towards recovery is if you don't think there's anything wrong with you." "Do Live Love is my eight-step program to help caregivers break the cycle of codependency." "What happened after Dale died? I became an alter ego for 33 years. I became Dew."
Teresa Youngstrom is a seasoned Registered Nurse and Dementia Specialist. She has almost 40 years of Clinical and Leadership experience. She became intensely focused on Memory Care when it touched her own family. Teresa is a PAC Certified Independent Trainer under Teepa Snow. Her passion for improving the lives of people living with Dementia led her to start her own business in 2018, “A Better Approach to Memory Care”, where she provides staff training, family consulting, professional education and a podcast called, “Memory Care with Teresa Youngstrom."https://www.seniorcareauthority.com/resources/boomers-today/
Brain Talk | Being Patient for Alzheimer's & dementia patients & caregivers
Dr. Catherine Madison joins Being Patient Live Talks to discuss how patients experience anosognosia in dementia, which is a neurological condition in which you are unaware of having a particular disease. She'll explain how understanding this symptom can help caregivers step into dementia's reality. Madison became a neurologist after being a caregiver to her mother, who died of dementia in 2011. She worked with Dagmar Dolby to open the Ray Dolby Brain Health Center in San Francisco in 2014. At this center, she provides support for the individuals and families navigating a dementia diagnosis. In particular, Madison focuses on providing education to the community around dementia planning and care. Listen to the full talk to learn more about anosognosia and dementia care.
A common symptom of schizophrenia is anosognosia. Anosognosia is when a person is unaware that they have mental health condition or cannot perceive their condition accurately. It is believed that between 50% to 98% of people with schizophrenia have some form of anosognosia. Is anosognosia that common? Could it be confused with denial? And how can caregivers, family, and loved ones of people with schizophrenia help them gain awareness into the disorder? Host Rachel Star Withers, a diagnosed schizophrenic, and co-host Gabe Howard discuss the symptom of anosognosia and the popular way of treating it, the LEAP method, in this episode of Inside Schizophrenia. Dr. Xavier Amador, creator of the LEAP method, world renowned clinical psychologist, and forensic expert joins in a conversation with Rachel on how caregivers and loved ones can use the LEAP method to help those in their lives struggling with schizophrenia symptoms. To learn more -- or read the transcript -- please visit the official episode page. Our guest, Dr. Xavier Amador, Founder and President of the LEAP Institute, is a world-renowned clinical psychologist, forensic expert, and author of 9 books, including the bestseller “I Am Not Sick I Don't Need Help!” His extensive work, books, and clinical research in schizophrenia, bipolar disorder, and other mental illnesses have been translated into 30 languages. Additionally, he has authored over 130 peer-reviewed scientific papers and has contributed his expertise to over 80 death penalty cases. He is also a family caregiver of two close relatives with schizophrenia and another with bipolar disorder. Dr. Amador has trained tens of thousands of professionals and families on LEAP® (Listen-Empathize-Agree-Partner), a communication approach that creates trusting relationships with people who have serious mental illness and anosognosia. Our host, Rachel Star Withers, creates videos documenting her schizophrenia, ways to manage and let others like her know they are not alone and can still live an amazing life. She has written Lil Broken Star: Understanding Schizophrenia for Kids and a tool for schizophrenics, To See in the Dark: Hallucination and Delusion Journal. Fun Fact: She has wrestled alligators. To learn more about Rachel, please visit her website, RachelStarLive.com. Our cohost, Gabe Howard, is an award-winning writer and speaker who lives with bipolar disorder. He is the author of the popular book, "Mental Illness is an Asshole and other Observations," available from Amazon; signed copies are also available directly from the author. Gabe makes his home in the suburbs of Columbus, Ohio. He lives with his supportive wife, Kendall, and a Miniature Schnauzer dog that he never wanted, but now can't imagine life without. To learn more about Gabe, please visit his website, gabehoward.com. Learn more about your ad choices. Visit megaphone.fm/adchoices
Your wife's dementia diagnosis at 43 has turned your world upside down. How do you care for her while preserving your sanity? Welcome to Feedback Friday! And in case you didn't already know it, Jordan Harbinger (@JordanHarbinger) and Gabriel Mizrahi (@GabeMizrahi) banter and take your comments and questions for Feedback Friday right here every week! If you want us to answer your question, register your feedback, or tell your story on one of our upcoming weekly Feedback Friday episodes, drop us a line at friday@jordanharbinger.com. Now let's dive in! On This Week's Feedback Friday: Your wife was diagnosed with behavioral variant frontotemporal dementia at 43, causing major personality changes. She now has delusions and aggression towards you. As her caregiver and husband, how do you cope with this devastating situation while maintaining your own well-being? You're a 31-year-old woman who's never dated before. You recently connected with a guy over intellectual discussions, but he suddenly cut off contact as you were preparing to move away. How do you process this confusing experience and move forward? You run a multi-million dollar tech startup and have encountered various scams, including a suspicious investment offer and fake job applicants. How do you protect your company from these threats while still pursuing growth opportunities? Jordan explains his cosleeping arrangement with Jen and and their two young children. What led them to choose this unconventional setup, and what advice does he have for other parents considering cosleeping? You're dealing with a messy divorce involving child support disputes and potential perjury by your ex-wife. Do you pursue legal action that could seriously affect her, or take the financial hit to maintain a civil co-parenting relationship? Have any questions, comments, or stories you'd like to share with us? Drop us a line at friday@jordanharbinger.com! Connect with Jordan on Twitter at @JordanHarbinger and Instagram at @jordanharbinger. Connect with Gabriel on Twitter at @GabeMizrahi and Instagram @gabrielmizrahi. Full show notes and resources can be found here: jordanharbinger.com/1029 This Episode Is Brought To You By Our Fine Sponsors: jordanharbinger.com/deals Sign up for Six-Minute Networking — our free networking and relationship development mini course — at
I discuss the nefarious nature of the "Freedom Rising Fellowship" program by Mercury One's Justin Haskins, as it claims to be the opposite of the WEF's Young Global Leaders, but it isn't. I bring up the ongoing playbook of the university protest agenda; more on Anosognosia; and now Arizona's Republican Party has declared the COVID jab as a tech-bio weapon.
I discuss the pre-planned erosion of our rights and how the current protests on university campuses were all planned in advance to arrive at the COLUMBIA Act. I also discuss violence in K12 schools from last week and how the current mental illness we may be witnessing is not only brainwashing, but perhaps a condition called Anosognosia. Digital Twin: https://odysee.com/@psinergy:f
This morning we take a look at the church who was known for making Jesus sick.“It's our delusions of strength that we should fear because they will keep us from seeking and celebrating [God's] grace.” -Paul TrippSupport Renaissance Christian Church and help spread the gospel by going to https://www.ren.church/give To get updates on events and opportunities, visit us at https://www.ren.church
Podcast Episode Show Notes: "Meggin Rose"Introduction: Join us for a powerful and insightful Just A Mom podcast episode as Susie sits down with the remarkable Meggin Rose. In this emotional conversation, Meggin candidly shares her journey as a parent navigating the complex terrain of mental health challenges within her family. From the early signs of her child's struggles to the hurdles of finding appropriate care during a pandemic, Meggin takes us through the heart-wrenching moments of hospitalization, medication challenges, and the delicate balance between advocacy and respecting autonomy.Background and FamilyMeggin provides an overview of her family, residing on a farm outside Ithaca, New York, and touches on her son's mental health struggles during high school.Early Signs and ChallengesMeggin reflects on the early signs of her child's mental health struggles, initially misattributed to typical adolescence. Challenges escalated during college, leading to serious mental health issues.Hospitalization and TreatmentMeggin shares the pivotal role of a compassionate psychiatric nurse in securing voluntary hospitalization. The family's connection with OnTrack New York and challenges with medication management are discussed.Medication Challenges and AdvocacyMeggin discusses the emotional roller coaster of medication changes, highlighting challenges with side effects, non-compliance, and the balance between mental health treatment and autonomy.Involuntary Hospitalization ChallengesMeggin advocates for changing standards for involuntary hospitalization in psychotic cases, emphasizing the need for a flexible approach.Parental Feelings and SupportMeggin opens up about intense parental emotions and the importance of seeking support, emphasizing advocacy and trust-building.Advocacy and Fierce Advocacy SkillsThe discussion covers Meggin's advocacy within the mental health care system, addressing challenges and emphasizing the need for family support.Join us in Part Two to hear more about how:Psychotic episodes can vary in symptoms and severity, and it is important to seek professional help for diagnosis and treatment.The impact of mental illness extends to the entire family, and support and understanding are essential for siblings and grandchildren.Coping and self-care are vital for caregivers, and finding joy in small moments can provide respite from the challenges.Marriages can be affected by the stress of caring for a loved one with mental illness, but open communication and support can help navigate the difficulties.Sharing the journey with others who have similar experiences can provide valuable support and understanding.While hope for the future may fluctuate, advancements in research and treatment offer potential for improved outcomes.Access to appropriate medications and treatment is crucial, and ongoing research is needed to develop more effective options.Anosognosia, the lack of awareness of one's mental illness, can complicate treatment and adherence to medication.
Subscribe to the podcast - https://www.overcomecompulsivehoarding.co.uk/subscribeToday with Dr Jan Eppingstall I explore the nuanced concept of insight in hoarding. From defining overvalued ideation to understanding the levels of insight, we unravel the challenges individuals face in recognising and addressing their hoarding behaviours. Through personal experiences, expert advice, and valuable research insights, this episode sheds light on personalised treatment approaches, effective communication strategies, and the importance of empathy and compassion. Get ready to gain a deeper understanding of hoarding disorder and discover practical ways to support individuals on their journey to overcoming compulsive hoarding.Insight into HoardingLevels and Types of InsightInsight Variability Among IndividualsFactors Influencing Insight (e.g. Comorbidity, Trauma, Life Experiences)Insight Study by Helena Drury and ColleaguesInsight in Diagnosis of Hoarding DisorderRelationship Between Hoarding Severity, Self-Criticism, Shame, and Preservation of Self-ConceptOvercoming Clutter BlindnessGetting Rid of Things and Challenging ThoughtsTaking Photographs of Living SpacesVulnerability in Showing Spaces to Someone ElseExposing Oneself to Getting Rid of Things and Challenging ThoughtsIdentifying and Addressing Lack of InsightAnosognosia and Overvalued IdeationReflecting Feelings and ThoughtsThe LEAP Technique for Support People, Coaches, and TherapistsUnderstanding Hoarding BehaviourMotivations Behind Hoarding TendenciesDefensive Denial and Psychological ReactanceDemographics and Characteristics of Hoarders in Research Settings and Community ServicesNeurocognitive Damage and Insight into Hoarding BehaviorCommunication and Approach in Supporting HoardersValidating Concerns and Correcting MisunderstandingsEmpathetic and Compassionate ApproachUsing "Yes, And" Technique in ConversationsTailoring Therapy Approach for Hoarding ClientsTreating things as an ExperimentImportance of Curiosity and Playfulness in Therapy ApproachLimitations of Manualised Treatments Hosted on Acast. See acast.com/privacy for more information.
On this week's episode I am delighted to be introducing you to our next special guest one of our provisional Psychologists and family therapists here at Body Matters, Emily Stewart-Petiq. Emily holds a Bachelor of Health Science (Epidemiology) Graduate Diploma of Psychological Science and Bachelor of Psychology with an (Honours- first class). Emily is specifically passionate about supporting adolescents who are experiencing Anorexia Nervosa where Emily is trained in MFBT Maudsley Family Based Therapy. Emily is also particularly interested in working with adult clients experiencing Eating Disorders, Anxiety, Depression, Trauma- related Difficulties, and Obsessive Compulsive Disorder. Where Emily utilises Cognitive Behavioural Therapy (CBT), Enhanced Cognitive Behavioural Therapy (CBT-E), Motivational Interviewing (MI), Dialectical Behavioural Therapy (DBT), Radical-Open Dialectical Behavioural Therapy (Ro DBT) and Acceptance and Commitment Therapy (ACT) approaches. Emily also believes in the therapeutic benefits of deeper awareness and connection, through gentle movement, mindful breathing, and meditation. Where Emily has also completed a 200 hour yoga teaching training. On this week's episode Emily will discuss the role of Family Based Therapy also known as Maudsley Family Based Therapy in the treatment of Restrictive Eating Disorders for adolescence. Where specifically, Emily will discuss this treatment for those experiencing Anorexia Nervosa and break down the importance of the support of family within the treatment team. As way to support families in supporting a child experiencing a restrictive Eating Disorder. Within this episode we also discuss the amazing program Support Wise that has been created by Body Matters at a tool for families within the process of being a part of Maudsley Family Based Therapy. So on that note, please enjoy our lovely guest Emily! Podcast summary 1. How an Eating Disorder can disrupt family life 2. Psychological, behavioural, and Psychical symptoms of restrictive eating 3. Anosognosia is being unaware of your own mental health condition 4. The role of family members in treatment 5. The 3 phases of Maudsley Family Based Therapy 6. Support Wise, Support for families at Body Matters Links from the episode: BMA Support wise courses to support parents: https://www.supportwise.com.au/ BodyMatters Australasia Website: https://bodymatters.com.au/ BodyMatters Instagram: bodymattersau Support Wise at BMA: https://www.supportwise.com.au/ Butterfly Foundation Helpline: Call their National Helpline on 1800 33 4673. You can also chat online or email
Dr. Eve Maram is a clinical and forensic psychologist and a certified Jungian Analyst in private practice in Orange, California. She joins us to share her perspective on schizophrenia, of it as a condition wherein the organizing function of the ego is overwhelmed by the turbulence waters of the unconscious (a statement that will be well flushed out in the interview); but we also go deep into her model of the schizophrenia complex, which is the bundle of “thoughts and feelings constellated by encounters with what we call schizophrenia, for those who experience symptoms, and for those others impacted by them” (another statement that will be fully flushed out throughout the interview). Throughout this interview we also explore what a complex is; the role schizophrenia played in the development of Jung's theories; the vital important of relationship for those with schizophrenia; how schizophrenia attacks relatedness; the various ways the schizophrenia complex arises within us and why; pharmaceutical vs non-pharmaceutical treatments of schizophrenia; the changing cultural tides around how medicine perceives schizophrenia; and practical advice for relating with those who have schizophrenia and their symptoms, advice for practitioners, loved-ones, and even for people with the condition themselves. Enjoy. For links to Dr. Maram's work, full show notes, and a link to watch this episode in video, head to bit.ly/ATTMind181 *** FULL TOPICS BREAKDOWN BELOW** SUPPORT THE PODCAST Become a member of my Patreon: https://patreon.com/jameswjesso Toss me a tip on PayPal: https://www.paypal.com/biz/fund?id=383635S3BKJVS Toss my a Tip on Ko-Fi: https://ko-fi.com/jameswjesso Buy some merchandise: https://www.jameswjesso.com/shop/ More Options: https://www.jameswjesso.com/support Newsletter: https://www.jameswjesso.com/newsletter Telegram Channel: https://t.me/jameswjesso *** Huge thanks to my patrons on Patreon! In particular, my $23+ patrons; Andreas D, Ian C, Yvette FC, Alex F, Eliz C, Nick M, Joe A, Heather S, & Heartwood Mushrooms —— Episode Breakdown (0:00) Opening (1:47) Episode overture and guest bio (5:21) Patron thanks (7:38) Interview begins (8:23) How Dr. Maram came to study schizophrenia (15:03) A Jungian definition of “complex” (18:14) The Schizophrenia Complex (24:10) How schizophrenia was essential in the development of Jung's ideas (26:37) We don't really know what schizophrenia is, exactly. (28:36) Schizophrenia as the ego mind being flooded by the unconscious (36:01) The Schizophrenia Complex arises from our fear of total annihilation (44:44) That fear is justified, for many reasons, what matters is that we are conscious of it. (51:09) Relationship is essential in navigating schizophrenia; but schizophrenia attacks relatedness (54:21) The Schizophrenia Complex manifesting through fawning (trying to save them) (1:00:04) Treating schizophrenia: pharmaceutical vs non-pharmaceutical methods (1:07:56) Anosognosia (1:09:32) Exploring the changing cultural tides around how medicine perceives schizophrenia (1:13:32) Telling the difference between psychosis and spiritual crisis (1:16:22) Some practical advice for practitioners working with people with schizophrenia (1:20:18) Some practical advice for people with schizophrenia grappling with their diagnosis and condition (1:24:58) Some practical advice for people living with/caring for loved ones with schizophrenia (1:31:51) Follow-up links and information about Dr. Maram's book, The Schizophrenia Complex (1:32:38) Closing
This week's episode is sponsored by The Anne and Henry Zarrow Foundation, a philanthropic entity dedicated to lifting Tulsans out of poverty by supporting housing and shelter resources, social services and basic human needs, accessible healthcare, and programs that empower and inspire community members to improve their lives. Today, we have Mental Health Association Oklahoma's Chief Programs Officer, Mark Davis talking with Dr. Xavier Amador, Co-Founder and CEO of the Henry Amador Center on Anosognosia and Founder of the LEAP Institute. Dr. Amador is an internationally renowned clinical psychologist and forensic expert, and he is the author of 9 books, including the best seller, “I AM NOT SICK, I Don't Need Help!” Additionally, he is a keynote speaker at the 2023 Zarrow Mental Health Symposium, themed New Horizons in Brain Science. We are grateful to have Dr. Amador on today, and we're excited to share this insightful and engaging conversation between him and our own Mark Davis.
Guest: Kathy Day, Senior Family Resource and Advocacy Manager,Treatment advocacy centerIn her role as the senior family resources and advocacy manager at Treatment Advocacy Center*, Kathy Day helps families across the country find resources and strategies to work within the system of mental healthcare for their loved ones who have severe mental illnesses. She supports, coaches, strategizes, and listens to people whose loved ones live with SMI. She helps families help their loved ones help themselves. Kathy shares her own journey through the process of getting her family member conserved in CA on her public Facebook blog, Broken.We Ask:What 2 or 3 things would you most like families to know as you tell us about your work?The immediate catalyst was when a listener asked us to address: why do so many people with schizophrenia "choose" to live on the street? What are your thoughts? (Related issues: Anosognosia, Substance abuse, Criminalization)Are there other reasons family members contact you?What have you found helps families most?What help and tips can you offer families who have family members living on the street?Any success stories?What resources do you most often refer people to?How did you get into this work (a bit of your story),?*The Treatment Advocacy Center is dedicated to eliminating legal and other barriers to the timely and effective treatment of severe mental illness. The organization promotes laws, policies and practices for the delivery of psychiatric care and supports the development of innovative treatments for and research into the causes of severe and persistent psychiatric illnesses, such as schizophrenia and bipolar disorder.Links:DayK@treatmentadvocacycenter.orghttps://www.treatmentadvocacycenter.org/“Broken” Blog:www.facebook.com/ourbrokensystemTAC Gala:https://tac25thanniversarygala.org/Want us to cover a topic? comment to share?Facebook page @Schizophrenia3Moms@SZ3MomsTrenches - twitterRandye Kaye -Broadcaster, Actress, Voice Talent, Speaker, and Author (“Ben Behind his Voices”, “Happier Made Simple”)Miriam Feldman – Artist, Mom, Author “He Came in With It”Mindy Greiling – member of the Minnesota House of Representatives for twenty years. Activist, Legislator, Author (“Fix What You Can“)
ANOSOGNOSIA by Rosa Argentina Rivas Lacayo
Among individuals with schizophrenia, an estimated 50% to 80% have a partial or even total lack of insight into the presence of their mental disorder. This condition, known as anosognosia, has also been observed in people with other diagnoses, such as bipolar disorder, major depression with psychotic features, obsessive-compulsive disorder, and eating disorders. The May-June 2023 issue of the Journal of Clinical Psychopharmacology features two articles on this topic, a commentary by Rachel Streiff, titled “Institutional Neglect of Anosognosia Is a Critical Barrier in the Treatment of Psychosis Related Disorders” and an editorial by Editor-in-Chief Anthony Rothschild, MD, titled “Can Psychopharmacology Do More for Our Patients With Anosognosia?” In this podcast, Ms. Streiff, who as cared for a family member with anosognosia, and Dr. Rothschild discuss their articles with Dr. Julia Koretski, Digital Editor of the journal. The articles and podcast are designed to heighten awareness of the scant research on medication treatments for people with serious mental illness who also experience anosognosia.
Dr. Drew joins Mark Geragos for today's episode and they open the show discussing the disturbing case of Lori Vallow who is accused of murdering two of her own children. They also go on to discuss the mental health phenomenon of 'anosognosia' and how plays in to the behavior of those struggling with homelessness on the streets of Downtown Los Angeles. Watch Beyond A Reasonable Doubt and all Reasonable Doubt video content on YouTube exclusively at YouTube.com/ReasonableDoubtPodcast and subscribe while you're there.
Rick served as Executive Director for National Alliance on Mental Illness (NAMI) Kansas from 2005-2018. Most recently, he directed the Behavioral Health Tobacco Project for NAMI Kansas from 2016-2022. He spent 27 years in advocacy and human services in Virginia. Rick has a Bachelor's degree in Psychology from Princeton University and a Graduate Certificate in Nonprofit Management from Virginia Commonwealth University. He is a graduate of the Sunflower Advocacy Fellowship, the Kansas Health Foundation Fellows VIII, and the Johnson and Johnson Head Start Management Fellows Program at the Anderson School of Business at UCLA. He is a recipient of the Samuel Crumbine Medal for Meritorious Service presented by the Kansas Public Health Association. Currently retired from paid work, he continues voluntary work related to mental health, criminal justice, and tobacco cessation.This is an important episode to me because my family has dealt first hand with severe mental illness, particularly schizophrenia. I am grateful for the conversations I've had with Rick and the work he has done to improve Kansas regarding mental health services. If you or a loved one you know is struggling with mental health, I would strongly urge you to look into NAMI. There are local chapters everywhere and it has been a lifegiving resource for my family. The sooner illnesses are treated, the better the outcomes. It is hard to articulate the feelings of helplessness you experience when a loved one is in a mental health crisis. I hope this episode finds seeking families just in time. EPISODE LINKS: National Alliance on Mental Illness: https://nami.org/HomeI'm Not Sick and I Don't Need Help by Dr. Xavier Amador: https://amzn.to/3JMuWQrCrazy: A Father's Search Through America's Mental Health Madness by Pete Earley: https://amzn.to/3FzWjvLWhat is anosognosia? https://www.treatmentadvocacycenter.org/key-issues/anosognosiaThe NAMI hotline: 1-800-950-NAMI (6264)An easy way to send me a message? Click the link here.Have you enjoyed the podcast? If so, follow it, rate it, and share it with three people: Follow on Apple Podcasts Follow on Spotify Follow on Instagram Subscribe on YouTube If you want to share feedback, have a great idea, or have a question then email me: talktopeoplepodcast@gmail.comProduced by Capture Connection Studios: captureconnectionstudios.com
Last week, we discussed the neuroscience behind spatial neglect. This week, we discuss an extreme case of neglect called Anasagnosia, where patients can't process anything on the left side of their visual field.
Can the brain fail to recognize health issues? Created & Produced by Arlene R. Taylor, PhD Brain Function Specialist Music Composed by David H. Hegarty Voiceover by Len Moors Videography by Anthony Imming Human Brain 3D Animation Free Creative Footage Library Video Editing by Hegarty Services Sponsored by Realizations Inc © 2023 Arlene R. Taylor, PhD All Rights Reserved. https://www.arlenetaylor.org/ NOTE: The next episode of Taylor Brain Bytes will air on March 11, 2023.
Dr. Xavier Amador is an internationally renowned clinical psychologist, author, and leader in his field. His books, published clinical research, worldwide speaking tours and extensive work in schizophrenia, bipolar and other disorders have been translated into 30 languages. He is also the CEO of the Henry Amador Center on Anosognosia and a family caregiver of two close relatives with serious mental illness. Dr. Amador is a Visiting Professor of Psychology at the State University of New York, and over the course of two decades he was Professor of Psychiatry and Clinical Psychology at Columbia University and Director of Psychology at the New York State Psychiatric Institute. His expertise has been called upon by government, industry and the broadcast and print media where he has appeared as a frequent expert for CNN, ABC News, NBC News, NBC Today Show Fox News Channel, CBS 60 Minutes, New York Times, Washington Post, USA Today, Cosmo, Wall Street Journal and many other national and international news outlets. He is the Founder of the LEAP Institute. (see: www.LEAPinstitute.org for information about LEAP, his books, appearances and recent media/press). You can find Dr. Xavier Amador online... www.leapinstitute.org www.hacenter.org Facebook Twitter Originally published 1/26/23
Many people with dementia look like they have denial when they actually have something called anonosognosia. Anosognosia means total lack of awareness and it means that there is no amount of evidence, convincing, or reasonsing that will ever get them to understand that they have cognitive limitations. When you try to point out how they need help, it often makes things worse. In today's episode, I talk about what you can do when someone with dementia seems to be in "denial" and you need them to understand something. For a brief description on how anosognosia differs from denial and important things to avoid, please click HERE to watch one of my videos. To sign up for my daily newsletter called the Dementia Daily Dose, you can click HERE.
According to the National Alliance on Mental Illness (NAMI), Anosognosia is when someone is unaware of their own mental health condition or they can't perceive their condition accurately. Rachel Johnston joins the Mental Health Mamas this week to share her journey from Anosognosia to acceptance of Bipolar disorder, what helped her along the way, and how we might best support a loved one struggling with Anosognosia.Episode mentions: I'm Not Sick I Don't Need Help! by Xavier AmadorVisit our website for more content: https://mentalhealthmamas.com/Leave us a voice message: 607-288-3382Claim your FREE Self-Care Workbook by joining our mailing list: https://mentalhealthmamas.com/connectReceive 10% off any Cope Notes subscription: copenotes.com/?affiliate=MHMamasMental Health Resources:Suicide Prevention Lifeline: The Lifeline provides 24/7, free and confidential support for people in distress, prevention and crisis resources for you or your loved ones, and best practices for professionals. Visit https://988lifeline.org/ for a chat option or call 988 in the United States.Crisis Text Line: Our goal is to help texters move from hot moments to a cool calm. Sometimes, that means we give our texters a resource – like a breathing GIF to help them slow down or a link to finding a support group near them.Website: www.crisistextline.orgUSA text 741741Canada text 686868UK text 85258Ireland 50808NAMI HelpLine: The NAMI HelpLine is a free, nationwide peer-support service providing information, resource referrals and support to people living with a mental health condition, their family members and caregivers, mental health providers and the public. HelpLine staff and volunteers are experienced, well-trained and able to provide guidance.To contact the NAMI HelpLine, please call 800-950-NAMI (6264), Monday through Friday from 10 a.m. to 6 p.m., ET, or send an email to info@nami.org.Substance Abuse and Mental Health Services Administration (SAMHSA) Helpline SAMHSA's National Helpline is a free, confidential, treatment referral and information service (in English and Spanish) for individuals and families facing mental and/or substance use disorders. Available 24/7, 365 days a year. 1-800-662-HELP (4357)Mama's Comfort Camp: a peer support network where moms of all ages and stages, from around the world (and across the street) lift up each other. Our motto is: Moms don't need more advice, we need more support. Our lovingly moderated forums are always on: 24/7/365. Find us on facebook: https://www.facebook.com/mamas.comfort.camp/National Parent Helpline® Call the National Parent Helpline® to get emotional support from a trained advocate and become empowered and a stronger parent. Available 10:00 a.m. to 7:00 p.m. PT, Monday through Friday. 1-855-427-2736 (4APARENT)Our listeners receive 10% off any Cope Notes subscription: copenotes.com/?affiliate=MHMamas
Have you ever wondered what would happen to you if you didn't understand that you needed treatment for your bipolar disorder (or other mental illness)? Have you heard of legal concepts like “Assisted Outpatient Treatment (AOT)” or “forced treatment” and wondered how they relate to “lack of insight?” Turns out there's a name for lacking insight — anosognosia. And it affects some people with severe and persistent mental illness. Listen as Gabe and Dr. Nicole explore what anosognosia means, what a diagnosis entails, and if the word is overused or weaponized contemporarily. Get ready, cause you won't see what this episode has coming. To learn more -- or read the transcript -- visit the official episode page. Meet Your Inside Bipolar Podcast Hosts Gabe Howard is an award-winning writer and speaker who lives with bipolar disorder. He is the author of the popular book, "Mental Illness is an Asshole and other Observations," available from Amazon; signed copies are also available directly from the author. He is also the host of Healthline Media's Inside Mental Health podcast available on your favorite podcast player. To learn more about Gabe, or book him for your next event, please visit his website, gabehoward.com. Dr. Nicole Washington is a native of Baton Rouge, Louisiana, where she attended Southern University and A&M College. After receiving her BS degree, she moved to Tulsa, Oklahoma to enroll in the Oklahoma State University College of Osteopathic Medicine. She completed a residency in psychiatry at the University of Oklahoma in Tulsa. Since completing her residency training, Washington has spent most of her career caring for and being an advocate for those who are not typically consumers of mental health services, namely underserved communities, those with severe mental health conditions, and high performing professionals. Through her private practice, podcast, speaking, and writing, she seeks to provide education to decrease the stigma associated with psychiatric conditions. Find out more at DrNicolePsych.com.
Dr. Taylor defines anosognosia and its effects on your brain. Check out https://allmylinks.com/brainfunctionguru And thank you for subscribing to my YouTube channel https://www.youtube.com/user/braingurutaylor Copyright © 2022 Arlene R. Taylor, PhD, Realizations Inc. All Rights Reserved. https://www.arlenetaylor.org
Welcome to The Nonlinear Library, where we use Text-to-Speech software to convert the best writing from the Rationalist and EA communities into audio. This is: The Apologist and the Revolutionary, published by Scott Alexander on the LessWrong. Rationalists complain that most people are too willing to make excuses for their positions, and too unwilling to abandon those positions for ones that better fit the evidence. And most people really are pretty bad at this. But certain stroke victims called anosognosiacs are much, much worse. Anosognosia is the condition of not being aware of your own disabilities. To be clear, we're not talking minor disabilities here, the sort that only show up during a comprehensive clinical exam. We're talking paralysis or even blindness1. Things that should be pretty hard to miss. Take the example of the woman discussed in Lishman's Organic Psychiatry. After a right-hemisphere stroke, she lost movement in her left arm but continuously denied it. When the doctor asked her to move her arm, and she observed it not moving, she claimed that it wasn't actually her arm, it was her daughter's. Why was her daughter's arm attached to her shoulder? The patient claimed her daughter had been there in the bed with her all week. Why was her wedding ring on her daughter's hand? The patient said her daughter had borrowed it. Where was the patient's arm? The patient "turned her head and searched in a bemused way over her left shoulder". Why won't these patients admit they're paralyzed, and what are the implications for neurotypical humans? Dr. Vilayanur Ramachandran, leading neuroscientist and current holder of the world land-speed record for hypothesis generation, has a theory. One immediately plausible hypothesis: the patient is unable to cope psychologically with the possibility of being paralyzed, so he responds with denial. Plausible, but according to Dr. Ramachandran, wrong. He notes that patients with left-side strokes almost never suffer anosognosia, even though the left side controls the right half of the body in about the same way the right side controls the left half. There must be something special about the right hemisphere. Another plausible hypothesis: the part of the brain responsible for thinking about the affected area was damaged in the stroke. Therefore, the patient has lost access to the area, so to speak. Dr. Ramachandran doesn't like this idea either. The lack of right-sided anosognosia in left-hemisphere stroke victims argues against it as well. But how can we disconfirm it? Dr. Ramachandran performed an experiment2 where he "paralyzed" an anosognosiac's good right arm. He placed it in a clever system of mirrors that caused a research assistant's arm to look as if it was attached to the patient's shoulder. Ramachandran told the patient to move his own right arm, and the false arm didn't move. What happened? The patient claimed he could see the arm moving - a classic anosognosiac response. This suggests that the anosognosia is not specifically a deficit of the brain's left-arm monitoring system, but rather some sort of failure of rationality. Says Dr. Ramachandran: The reason anosognosia is so puzzling is that we have come to regard the 'intellect' as primarily propositional in character and one ordinarily expects propositional logic to be internally consistent. To listen to a patient deny ownership of her arm and yet, in the same breath, admit that it is attached to her shoulder is one of the most perplexing phenomena that one can encounter as a neurologist. So what's Dr. Ramachandran's solution? He posits two different reasoning modules located in the two different hemispheres. The left brain tries to fit the data to the theory to preserve a coherent internal narrative and prevent a person from jumping back and forth between conclusions upon each new data point. It is primarily an apologist, there to explain why any experience is exactly what its own theory would have predicted. The right b...
Welcome to The Nonlinear Library, where we use Text-to-Speech software to convert the best writing from the Rationalist and EA communities into audio. This is: Bayes for Schizophrenics: Reasoning in Delusional Disorders , published by Scott Alexander on the LessWrong. Related to: The Apologist and the Revolutionary, Dreams with Damaged Priors Several years ago, I posted about V.S. Ramachandran's 1996 theory explaining anosognosia through an "apologist" and a "revolutionary". Anosognosia, a condition in which extremely sick patients mysteriously deny their sickness, occurs during right-sided brain injury but not left-sided brain injury. It can be extraordinarily strange: for example, in one case, a woman whose left arm was paralyzed insisted she could move her left arm just fine, and when her doctor pointed out her immobile arm, she claimed that was her daughter's arm even though it was obviously attached to her own shoulder. Anosognosia can be temporarily alleviated by squirting cold water into the patient's left ear canal, after which the patient suddenly realizes her condition but later loses awareness again and reverts back to the bizarre excuses and confabulations. Ramachandran suggested that the left brain is an "apologist", trying to justify existing theories, and the right brain is a "revolutionary" which changes existing theories when conditions warrant. If the right brain is damaged, patients are unable to change their beliefs; so when a patient's arm works fine until a right-brain stroke, the patient cannot discard the hypothesis that their arm is functional, and can only use the left brain to try to fit the facts to their belief. In the almost twenty years since Ramachandran's theory was published, new research has kept some of the general outline while changing many of the specifics in the hopes of explaining a wider range of delusions in neurological and psychiatric patients. The newer model acknowledges the left-brain/right-brain divide, but adds some new twists based on the Mind Projection Fallacy and the brain as a Bayesian reasoner. INTRODUCTION TO DELUSIONS Strange as anosognosia is, it's only one of several types of delusions, which are broadly categorized into polythematic and monothematic. Patients with polythematic delusions have multiple unconnected odd ideas: for example, the famous schizophrenic game theorist John Nash believed that he was defending the Earth from alien attack, that he was the Emperor of Antarctica, and that he was the left foot of God. A patient with a monothematic delusion, on the other hand, usually only has one odd idea. Monothematic delusions vary less than polythematic ones: there are a few that are relatively common across multiple patients. For example: In the Capgras delusion, the patient, usually a victim of brain injury but sometimes a schizophrenic, believes that one or more people close to her has been replaced by an identical imposter. For example, one male patient expressed the worry that his wife was actually someone else, who had somehow contrived to exactly copy his wife's appearance and mannerisms. This delusion sounds harmlessly hilarious, but it can get very ugly: in at least one case, a patient got so upset with the deceit that he murdered the hypothesized imposter - actually his wife. The Fregoli delusion is the opposite: here the patient thinks that random strangers she meets are actually her friends and family members in disguise. Sometimes everyone may be the same person, who must be as masterful at quickly changing costumes as the famous Italian actor Fregoli (inspiring the condition's name). In the Cotard delusion, the patient believes she is dead. Cotard patients will neglect personal hygiene, social relationships, and planning for the future - as the dead have no need to worry about such things. Occasionally they will be able to describe in detail the "decomposition" they believe they are undergoing. Patients with all these types of delusions1 - as well...
In this episode, Meghan speaks with Maeve McGrath about bringing awareness to mental health laws in the United States, inspired by her brother Ryan. Maeve's brother struggles with bipolar disorder, which resulted in him becoming homeless and living on the streets of Venice, California. Maeve fights everyday to save his life. She speaks on how the families of those who are mentally ill and homeless feel hopeless and betrayed because it is so much harder to get them help if they refuse to take their lifesaving medication. Her brother suffers from a condition called Anosognosia, also called “lack of insight”. Maeve explains that those who have this condition do not have the ability to recognize their illness. Maeve and Meghan discuss several options such as, “The Three Strikes Option” and that this is no longer a situation or sad but, a “Humanitarian Crisis” and extremely dangerous for everyone. About Maeve: Maeve McGrath has been a working illustrator and animator in Los Angeles since 2002. She has lived on the westside for over 20 years, currently living in Playa del Rey. Maeve has juggled raising her daughter and work while taking care of her brother who suffers from severe Bipolar illness and is committed to raising awareness of the need for reform in this nation's mental health laws.Support the show (https://judgingmeghan.com/support/)
Today, we’ll be taking a closer look at some of the symptoms of schizophrenia. In particular, the cognitive losses that can be associated with serious mental illnesses like schizophrenia or bipolar disorder. Anosognosia is a medical term meaning 'to not know a disease.' This occurs for people with brain injuries as well as mental illness, and means someone is literally unaware of their own mental health condition or they can't see it accurately. This lack of insight is not a rejection of a diagnosis or denial because they don’t want to face the facts, but an honest inability to consciously to see and understand that their behaviours and experiences are indicators of something wrong. While it's a common symptom, it's also one of the more difficult aspects to understand for those who have never experienced it. What causes anosognosia? How do people put their hands up and ask for help if they can't see it? What are the cognitive losses associated with schizophrenia and what can people do about them? These are some of the questions we'll be tackling on this episode with Dr. Mahesh Menon, a clinical psychologist with Vancouver Coastal Health, and based at the BC Psychosis Program and the Mood Disorders Program at UBC Hospital. Additional Resources Mahesh Menon Bio (https://psychiatry.ubc.ca/person/mahesh-menon/) Anosognosia (https://www.nami.org/About-Mental-Illness/Common-with-Mental-Illness/Anosognosia) Eliminating Barriers to the Treatment of Mental Illness (https://www.treatmentadvocacycenter.org/key-issues/anosognosia) Lack of Insight Into One's Mental Illness or Anosognosia (https://www.psychologytoday.com/ca/blog/recovery-road/202108/lack-insight-ones-mental-illness-or-anosognosia) Cognitive Remediation Programs in BC (https://www.bcss.org/bringing-cognitive-remediation-to-british-columbia/) “I’m Not Sick, I Don’t Need Help” – book by Dr. Xavier Amador (https://www.amazon.ca/Not-Sick-Dont-Need-Help-dp-0985206705/dp/0985206705) “I’m Not Sick, I Don’t Need Help” – TedTalk by Dr. Xavier Amador (https://www.youtube.com/watch?v=NXxytf6kfPM) Cognitive Losses in Schizophrenia (https://livingwithschizophreniauk.org/cognitive-symptoms-schizophrenia/) See omnystudio.com/listener for privacy information.
If you care for someone with a diagnosed serious mental illness (SMI) , you know that it isn't easy to help them begin, or continue, treatment.You hear “I'm not sick! I don't need help!”That phrase inspired our guest to find a way, write a book, and create a movement.Dr. Xavier Amador is a world-renowned clinical psychologist & forensic expert, and a Family caregiver of relatives with schizophrenia and bipolar. He founded NAMI's Scientific Council, helped to launch Family-to-Family, Peer-to-Peer & In Our Own Voices, and wrote the book I AM NOT SICK I Don't Need Help! We talk about:Dr. Amador's family story: his brother Henry, and his son, with SchizophreniaWhat do we do when our loved one says I am not sick, I don't need help?Listening: without judgment, and with respect.Anosognosia, and how to approach someone who has itThe Henry Amador Center on Anosognosia The power of your relationshipChanges - and changes needed - in the mental health systemTakeaways from the input from families and also people with mental illness?Diffusing Anger3 A's: Apologize, Acknowledge, Agree (to disagree)Crisis Communication v. long-term communicationThe LEAP method (listen, Empathise, Agree, Partner) and how families - and law enforcement - can be trainedRole-play: Addressing Covid Vaccine reluctance with relative with SMI LAI (long-acting injectables) vs. pills every dayQuotes:“You're not going to make a delusion worse by listening to it and letting your loved one know that you've heard him and that you understand his anger, you understand his fear.” - Dr. AmadorMy brother never believed he was mentally ill...but he stayed in treatment for the rest of his life” - Dr. AmadorLinks:Henry Amador Center on Anosognosia: https://hacenter.org/homeBook: I Am Not Sick! I Don't Need Help: 20th Anniversary Edition: https://www.amazon.com/gp/product/0985206705/ref=dbs_a_def_rwt_hsch_vapi_taft_p1_i0 Who Are the 3 Moms?Randye Kaye -Broadcaster, Actress, Voice Talent, Speaker, and Author (“Ben Behind his Voices”)Miriam Feldman – Artist, Mom, Author “He Came in With It”Mindy Greiling – member of the Minnesota House of Representatives for twenty years. Activist, Legislator, Author (“Fix What You Can“)
This week's listener question was “is there any new research about curing anosognosia?” Anosognosia is a medical term derived from Greek root words that mean “lack of disease knowledge.” Although anosognosia started off as a neurological concept, it's also very common for people with psychiatric conditions to have no awareness that their symptoms are unusual, or that they could indicate the presence of a mental illness. Emerging data suggest that impaired insight in mental illness might -- like neurological anosognosia -- involve those outer layers of the right side of the brain. It turns out that a unique form of brain stimulation that activates the right brain can temporarily reverse anosognosia in people who have had strokes... and in people with insight-impairing bipolar disorder or schizophrenia. The studies are small. And the findings are preliminary. But the results open the possibility of treating bipolar disorder or schizophrenia without medications. And the data also suggests very strongly that insight impairment in psychosis is more like the anosognosia typically seen in neurological disorders than the commonly assumed psychological denial or willful disregard. Companion YouTube video about vestibular stimulation as a possible mania-reducing, psychosis-reducing, and insight-improving treatment in bipolar disorder or schizophrenia. Topics covered 1:01 – What is anosognosia? 1:45 – Is anosognosia a form of psychological denial? 3:19 – Psychological defense mechanisms versus willful denial of illness? 4:15 – The difference between denial and anosognosia 4:40 – History of the anosognosia concept 7:28 – What types of brain injury can cause anosognosia? 10:05 – What are some functions of the cerebral cortex? 12:03 – Can anosognosia be a feature of psychiatric conditions? 12:30 – Lack of illness awareness is common in psychiatric conditions 15:08 – An example of insight impairment in schizophrenia 18:26 – Can psychiatric treatment improve insight or illness awareness? 22:36 – What can family or friends do? 22:52 – The controversy of involuntary treatment 26:00 – Strong caring relationships are better than strong logical arguments 28:23 – Do neurological factors contribute to lack of illness awareness in psychiatric conditions? 29:45 – A simple procedure that can temporarily reduce symptoms and improve insight 34:13 – The possibly paradigm-shifting significance of vestibular stimulation studies Quotes It's been said that people are persuaded by the strength of relationships more so than by the strength of logic. If you look at people that have had bipolar mania or manic episodes because of brain injuries, then you'll find that about 60% of those individuals have brain damage to the right side of the brain only, and about 10% have brain damage to the left side of the brain. We can temporarily create small windows of insight or temporarily eradicate anosognosia in stroke victims by this cold-water simulation in the left eardrum. And we can do the same thing with schizophrenia and mania, apparently. Resources The book I Am Not Sick, I Don't Need Help! How to Help Someone Accept Treatment by Xavier Amador is one of the most helpful resources for friends or family members to understand anosognosia/illness unawareness and how to befriend, support, and effectively encourage someone to accept treatment. About the Podcast: Dr. Erik Messamore is a board-certified psychiatric physician and PhD-level pharmacologist. He's a consultant psychiatrist, researcher, lecturer, teacher, and solution-focused scholar currently affiliated with the Northeast Ohio Medical University in Rootstown, Ohio. He is joined on this podcast by Melissa Xenophontos, a journalist, radio producer and longtime mental health advocate. Send us a question Useful Links Dr. Erik's website and blog Podcast website Ask A Psychiatrist YouTube Channel
Jennifer Cohen interviews Xavier Amador, PhD, the CEO of the Henry Amador Center for Anosognosia. Dr. Amador has 30 years of experience as a clinical psychologist, researcher, author, and caregiver for people suffering with serious mental illnesses. Dr. Amador is the author of several books including, I'm Not Sick, I Don't Need Help: How to Help Someone Accept Treatment, and has authored or co-authored over 120 peer-reviewed articles. He is a frequent expert in both print and broadcast media. In this interview, Dr. Amador discusses the communication tools he has developed for assisting people with serious mental illnesses accept treatment, especially those patients who lack insight into their symptoms and disease, the ethics of overriding autonomy, the best ways to share information with clinicians while respecting confidentiality, and meeting the rising rates of mental illness in the US.
En este episodio, entrevisto a Loles Villalobos Tornero, neuropsicóloga en Centro Europeo de Neurociencias, Doctora en Ciencias de la Salud, profesora en la Universidad Alcalá de Henares e investigadora en laboratorio de Neurociencia cognitiva y computacional de la Universidad Politécnica de Madrid y de la Universidad Complutense de Madrid. Ha publicado varios artículos relacionados con la conciencia del déficit tras el daño cerebral adquirido. Hablamos sobre conciencia de déficit en el DCA y en general, partiendo de la estructuración de su tesis doctoral. Referencias del episodio: (1) Villalobos (2020). Conciencia de déficit como proceso clave en la rehabilitación de pacientes con daño cerebral adquirido: revisión sistemática (https://www.neurologia.com/articulo/2019313). (2) Villalobos (2021). Cognitive predictors of self-awareness in patients with acquired brain injury along neuropsychological rehabilitation (https://pubmed.ncbi.nlm.nih.gov/32325009/). (3) Klingbeil (2020). Hippocampal diaschisis contributes to anosognosia for hemiplegia: Evidence from lesion network-symptom-mapping (https://www.sciencedirect.com/science/article/pii/S1053811919310766). (4) Bivona (2020). The Self-Awareness Multilevel Assessment Scale, a New Tool for the Assessment of Self-Awareness After Severe Acquired Brain Injury: Preliminary Findings (https://www.frontiersin.org/articles/10.3389/fpsyg.2020.01732/full). (5) Villalobos (2020). Self-Awareness Moderates the Association Between Executive Dysfunction and Functional Independence After Acquired Brain Injury (https://academic.oup.com/acn/article-abstract/35/7/1059/5879470?redirectedFrom=fulltext). (6) Villalobos (2018). Efficacy of an intervention programme for rehabilitation of awareness of deficit after acquired brain injury: A pilot study (https://pubmed.ncbi.nlm.nih.gov/29206059/). (7) Villalobos (2019). Improving Self-awareness After Acquired Brain Injury Leads to Enhancements in Patients' Daily Living Functionality (https://www.cambridge.org/core/journals/brain-impairment/article/improving-selfawareness-after-acquired-brain-injury-leads-to-enhancements-in-patients-daily-living-functionality/FCC3B3C2C4C2813E610D45DD07700197).
Join Pamela D Wilson, Caregiving Expert for Working and Taking Care of Elderly Parents. How what you don't know can negatively impact care for the elderly and what to do about it. Guest Dr. Aninda B. Acharya, Associate Professor of Neurology from Washington University shares information about Anosognosia – a lack of insight into health concerns and safety for persons diagnosed with mental illness, stroke, dementia, or brain injuries.
Sal shares the ups and downs of his relationship with his father as they both battle the ghosts from their pasts and have to reconcile as a greater monster steps into both of their lives. What can heal the wounds of the past and reunit the hearts of father and son... --- Send in a voice message: https://anchor.fm/sal205/message
Episode 14: Gender DiversityThe sun rises over the San Joaquin Valley, California, today is May 29, 2020.Did you know that educational attainment has been demonstrated to be a strong predictor of health outcomes, including obesity and age of death?(1) That should be a motivation to continue educating yourself, for instance, you can listen to this podcast while you go for a walk around your block… what a great combination! If increasing your health is not enough to motivate you to listen, what if we offer you money? You’ll be surprised at the end of this episode.Summer is now in full swing. Many of our patients continue to work, or even may have more work, during this season. According to Mayo Clinic nephrologist William Haley, heat and lack of proper hydration lead to a higher prevalence of nephrolithiasis in the summer. It’s good to remember that kidney stones between 5-10 mm have a higher passing rate, and tamsulosin may facilitate this process. You would need to treat five patients with kidney stones 5-10 mm to get one stone passage. Stones larger than 10 mm are less likely to pass and may require urology consult. So, this summer, remind your patients to stay well hydrated.Welcome to Rio Bravo qWeek, the podcast of the Rio Bravo Family Medicine Residency Program, recorded weekly from Bakersfield, California, the land where growing is happening everywhere.The Rio Bravo Family Medicine Residency Program trains residents and students to prevent illnesses and bring health and hope to our community. Our mission: To Seek, Teach and Serve. Sponsored by Clinica Sierra Vista, Providing compassionate and affordable care to patients throughout Kern and Fresno counties since 1971.[Music continues and fades…] “My mission in life is not merely to survive, but to thrive; and to do so with some passion, some compassion, some humor, and some style.” –Maya Angelou.Passion, compassion, humor, and style(4) —that sounds like a good combination to thrive. Residency is a very special time of your life. Enjoy it! We have a very special resident today. Claudia Carranza was interviewed in Episode 11 “Chlamydia with Clau”, so you probably remember her. That’s why I will change the first question. Question Number 1: Claudia tell us something random about you. My husband and I have a dog, we bought a house in Bakersfield, and I love dancing hip-hop, merengue, and zumba. Question number 2: What did you learn this week? This week I learned about what gender identity truly means. I am embarrassed to admit it but although Ithink of myself as a very open minded and respectful person, I did not really understand the differencebetween gender expression, gender identity, etc. I was watching “Becoming”, Michelle Obama’s documentary. At the very end they had young adults introducing themselves and one person said “I’m non-binary”, and then it hit me. Do I, a resident physician, really understand how I would address or refer to a nonbinary patient? And the answer was NO. Today I will introduce these concepts in a simple way so we better understand them. Definition of gender and more Gender is assigned at birth based on genitalia and chromosomes; male and female which would be the “assigned gender” at birth. Gender identity is the innate sense of feeling male, female, neither or a bit of both. There is researchwith regards to gender identity and how the main drive of it is in the brain. I did have a professor inmedical school who had done research for many years in mice; he studied the brain and differentcomponents. One of his research topics focused on how sex genes/hormones change duringdevelopment of an embryo/fetus and, to put it in simple terms, the amount of X and Y did not alwaysnecessarily match the chromosomal make up or genitalia of the fetus. I wish I could find some of his research to share it but after so many moves during med school I do not actually have any of the info, but I promise to upload to our website it when I get a chance to find it. One research article I did find that was published on Nature is called “Sex Chromosomes and Brain Gender”(5). In a nutshell it states that hormones not only have specific changes in the brain as a whole but also differentiate the “XX” and “XY” brain SEX cells. This is not to say that there is a “female” or “male” brain, which is something I have read on the internet; these types of research from my understanding is attempting to explain that there are many components playing a role in gender identity determination, and that it is not black or white. Gender expression is the way gender is presented to others; and this can vary depending on cultures, religion, time. How we chose to express our gender in public in terms of clothing, haircut, voice, behavior. Gender diversity is a terminology replacing the prior “gender non-conformity” which includes any variation from the cultural norm. Transgender is an ADJECTIVE for a person whose gender identity differs from the assigned gender atbirth. A Transgender man/transman/transmasculine individual is a person with a masculine gender identity who was assigned female sex at birth. A Transgender woman/transwoman/transfeminine individual is a person with a feminine gender identity who was assigned male sex at birth. Cisgender is person whose gender identity matches their genital anatomy. For example, I identify myself as cisgender. Nonbinary gender identity which is a person of any assigned gender sex at birth who has a gender identity that is neither feminine or masculine, or it could be a combination of both. Meaning of LGBT We have all probably heard about LGBT, but since 1996 there was a Q added to LGBT → LGBTQ for those who identify as queer or are questioning. There is another variant LGBTI or LGBTIQ where the I includes intersex people to LGBT groups. LGBT + encompasses spectrums of sexuality and gender. For those of us who are unfamiliar, intersex refers to individuals born with any variation in sex characteristics such as chromosomes, gonads, sex hormones or genitals that do not fit the typical definition of male/female bodies; for example, you might have heard of the previously used term “hermaphrodite”. This word is no longer appropriate for use of humans as it can be misleading. Comment: There is more about gender than we currently know. We have patients who were raised as boys and later on they realized they had uterus and ovaries. We know there are medical conditions in which sex is not black and white. In those cases, we have to be very sensitive to our patients, and provide the care they need and deserve in a respectful and effective way. Question number 3: Why is that knowledge important for you and your patients? I think understanding and respecting patients and their gender identity is important for any physician. We are here to treat, help and improve the health of our patients. As family physicians or primary carephysicians we are sometimes going to be the first step in a parent understanding a child’s genderidentity. We should support a gender-affirmative model which would include allowing or encouragingchildren to express their perceived gender in a supportive and safe environment; this would include notonly in the office but also in their home, school, etc. It’s important for us to understand that it is a normal part of growing up for children to explore genderexpression and gender roles. Children do assume gender stereotypes for themselves, this usually startsin preschool and later is more defined in school aged children. One thing to note is that the genderbehavior and expression becomes more persistent with age. In a cohort study by Gulgoz S and others “Similarity in transgender and cisgender children’s gender development,”(6) it was found that the persistency of gender expression was coherent between both groups, meaning that transgender and cisgender children began to affirm their gender expression at about the same pace and time. For all physicians out there, if you do not know enough or are not comfortable with talking to parents orpatients about gender diversity then PLEASE make sure to refer them to someone who isknowledgeable! Parents and patients will need lots of guidance especially as they go throughadolescence when gender diverse patients will undergo likely unwanted pubertal changes. Some may experience gender dysphoria which is discomfort or distress by a mismatch between gender identity and the gender sex assigned at birth. This can develop into depression or anxiety which can lead patients to participate in risky behaviors. Comment: I agree with you, we should educate ourselves on the treatment of this diverse population. You can choose what to believe, you can raise your family the way you want, teach your family values you consider right for you and your family, but at the same time educate yourself how to treat this population, and if you decide to refer to another provider, it is also acceptable. Question number 4: How did you get that knowledge?My go-to is always UpToDate, but I have to admit I did use Wikipedia this time and Google to have abetter understanding on when abbreviations changed, or to read about the opinion of the generalpopulation on gender identity issues and just to see what other sources I could find. Comment: Yes, UpToDate is an excellent source, but in a topic like this, you can expand your search to many other resources. And you also mentioned that a documentary motivated you to do more research about a topic which you ignored. Question number 5: Where did that knowledge come from? Besides UpToDate “Gender development and clinical presentation of gender diversity in children andadolescents”(7) and Wikipedia “LGBT”(8), I read planned parenthood “Sex and Gender Identity”(9), the TREVOR project “Trans + Gender Identity”(10), I also read an article in Nature Neurology “Sex Chromosomes and Brain Gender”, and a Pubmed article “Similarity in Transgender and Cisgender Children’s gender development”.____________________________Speaking Medical (Medical word of the Week): by Dr Gregory FernandezThe medical term for this week is Anosognosia. Anosognosia is an inability or refusal to recognize a defect or disorder that is clinically evident. It’s like denying it’s sunny when you are out in Bakersfield at noon in mid-July. Anosognosia is the result of damage to the brain structures, typically to the parietal lobe or a diffuse lesion on the fronto-temporal-parietal area in the right hemisphere. Anosognosia can present as a sign of Alzheimer’s disease, traumatic brain injury, stroke, or mental illness such as anorexia nervosa or schizophrenia. Anosognosia is very similar to denial, but denial is a defense mechanism. When you don’t want to admit that you’ve gained weight, even when your jeans don’t fit you anymore, you don’t have Anosognosia, you are just in denial. ____________________________Espanish Por Favor (Spanish Word of the Week): Pecho by Dr Claudia CarranzaHi this is Dr Carranza on our section Espanish por favor. This week’s word is pecho. Pecho means chest or breast and pechos mean breasts. This word comes from Latin root “pectus” which means chest. Patients can come to you with the complaint: “Doctor, me duele el pecho” which means “Doctor, I have chest pain”- take a minute, take a deep breath, this does not necessarily mean you have to start an ACS work up; remember the other etiologies such as costochondritis or muscle pain. Also remember it could mean that their breast hurts; think of this especially in lactating mothers or if the patient says: “Doctor, me duelen los pechos” which means “Doctor, my breasts hurt”. At that point, switch gears and focus on breast pain instead of chest pain. For example, inquire about lactation, relations to menstrual cycle, triggers, or dig for red flags if you suspect cancer. Now you know the Spanish word of the week, pecho. See you next time! ____________________________For your In-sanity by Dr Steven SaitoSend your answers to RBresidency@clinicasierravista.org. This podcast was created for family medicine residents, but we have listeners of all walks of life in different parts of the world. So, this week, we want to reward your loyalty to medical education whoever you are. We are going to give you three questions about topics covered in this podcast, and the first listener to give us the correct answers to the three questions will be awarded an Amazon gift card. The three questions are:For the treatment of acute cluster headache, in what nostril is recommended you administer an intranasal triptan? What is the other term used for “wet-to-dry” dressings in wound care? Why do we use single-dose vaccine vials instead of multidose vaccine vials? If you want a clue about these questions, a key number would be 3-6-9. Now we conclude our episode number 14 “Gender Diversity”. Dr Carranza taught us what “non-binary” means and gave us an introduction to the terminology LGBTIQ. Is it chest pain or breast pain? That’s the question you should ask when a patient tells you in Spanish they have pain on their pechos. Anosognosia is the inability to recognize a sign of disease even when it is grossly evident. For your IN-sanity this week, we asked three questions: 1. In what nostril should you apply intranasal triptans to treat an acute cluster headache? 2. What’s another term for wet-to-dry dressing? and 3. Why do we use single-dose vaccine vials? The first listener who answers correctly to the three questions will get a prize. Getting pay to keep learning –It cannot get any better than that. Send your answers to RBresidency@clinicasierravista.org. This is the end of Rio Bravo qWeek. We say good bye from Bakersfield, a special place in the beautiful Central Valley of California, United States, a land where growing is happening everywhere.If you have any feedback about this podcast, contact us by email RBresidency@clinicasierravista.org, or visit our website riobravofmrp.org/qweek. This podcast was created with educational purposes only. Visit your primary care physician for additional medical advice. Our podcast team is Hector Arreaza, Steven Saito, Claudia Carranza, Terrance McGill, and Gregory Fernandez. Audio edition: Suraj Amrutia. See you soon! __________________________References:Jones, Daniel W., “One Doctor’s Opinion on Why the US Obesity Pandemic Persists, The American Journal of Medicine,” Elsevier, April 2020, Vol 133, Number 4, 401-403.Sparks, Dana, “Greater Risk for Kidney Stones in Summer”, Mayo Clinic, https://newsnetwork.mayoclinic.org/discussion/greater-risk-for-kidney-stones-in-summer/ , August 4, 2015.POEMs (Patient-Oriented Evidence that Matters), “Tamsulosin Beneficial for Passage of 5-10 mm Distal Ureteral Stones”, Am Fam Physician, 2017, Jan 15; 95(2):123a-124. https://www.aafp.org/afp/2017/0115/p123a.htmlBrainy Quotes, https://www.brainyquote.com/authors/maya-angelou-quotesArnold, A., “Sex chromosomes and Brain Gender”. Nat Rev Neurosci5, 701–708 (2004). https://doi.org/10.1038/nrn1494Selin Gülgöz, Jessica J. Glazier, and col., “Similarity in transgender and cisgender children’s gender development”, PNASDecember 3, 2019, 116 (49) 24480-24485; https://doi.org/10.1073/pnas.1909367116“Gender development and clinical presentation of gender diversity in children and adolescents”, by Michelle Forcier, MD, MPHJohanna Olson-Kennedy, MD, UpToDate, https://www.uptodate.com/contents/gender-development-and-clinical-presentation-of-gender-diversity-in-children-and-adolescents, accessed on May 21, 2020.LGTB, Wikipedia, https://en.wikipedia.org/wiki/LGBT, accessed on May 21, 2020.“Sex and Gender Identity”, Planned Parenthood, https://www.plannedparenthood.org/learn/gender-identity/sex-gender-identity , accessed on May 21, 2020.Trevor Support Center, “Trans + Gender Identity”, https://www.thetrevorproject.org/trvr_support_center/trans-gender-identity/
Leslie Carpenter is a serious brain disorders advocate who is working to improve quality of care for people with brain disorders all along the continuum of care locally, in the state of Iowa and in the country. She also teaches NAMI Family to Family & NAMI Provider training and is an active member of her local NAMI Johnson County Board of Directors in Iowa City, Iowa. She and her husband, Scott, have been advocating for improvements in reimbursement rates for mental health professionals, treatment facilities, supportive community housing and ending the IMD exclusion. They have 2 children, one of whom has a Schizoaffective Disorder combined with Anosognosia. They have witnessed just how traumatic it can be for someone with a serious brain disorder to get medical treatment, and want to work for improved collaboration between the patients and providers, and amongst the people involved at all levels of treatment. -- Leslie's Famous Snickerdoodle Recipe!!!! 3 3/4 Cups All-Purpose Baking Flour 1/2 Teaspoon Baking Soda 1/2 Teaspoon Cream of Tartar 1/2 Teaspoon Salt 1 cup softened butter 2 cups sugar 2 eggs 1/4 cup milk 1 teaspoon vanilla 3 tablespoons sugar 1 teaspoon cinnamon Oven 375 degrees. Grease a cookie sheet. Stir together flour, soda, cream of tartar, and 1/2 teaspoon salt. Beat butter for 30 seconds; add the 2 cups of sugar and beat till fluffy. Add eggs, milk, and vanilla; beat well. Add dry ingredients to mixture, beating well till well combined. Form dough into 1" balls; roll in a mixture of the 3 teaspoons sugar and cinnamon. Place balls 2" apart on a cookie sheet; flatten slightly. Bake in a 375 degree oven about 8 minutes or till light golden. Makes about 60! -- Topics Include: Why use the term "Brain Disorder"? What personal interactions has she had with presidential candidates in Iowa? How can the court system support those with who struggle with their diagnosis? What does healing mean to you? Shownotes: "Crazy: A Father's Search Through America's Mental Health Madness" by Pete Earley "I'm Not Sick, I Don't Need Help" by Dr. Xavier Amador NAMI - National Alliance on Mental Illness. There are also links to state-specific NAMI sites Joe Biden Mental Health Platform Next Episode: Parenting During a Pandemic
Leslie Carpenter is a serious brain disorders advocate who is working to improve quality of care for people with brain disorders all along the continuum of care locally, in the state of Iowa and in the country. She also teaches NAMI Family to Family & NAMI Provider training and is an active member of her local NAMI Johnson County Board of Directors in Iowa City, Iowa. She and her husband, Scott, have been advocating for improvements in reimbursement rates for mental health professionals, treatment facilities, supportive community housing and ending the IMD exclusion. They have 2 children, one of whom has a Schizoaffective Disorder combined with Anosognosia. They have witnessed just how traumatic it can be for someone with a serious brain disorder to get medical treatment, and want to work for improved collaboration between the patients and providers, and amongst the people involved at all levels of treatment. -- Leslie's Famous Snickerdoodle Recipe!!!! 3 3/4 Cups All-Purpose Baking Flour 1/2 Teaspoon Baking Soda 1/2 Teaspoon Cream of Tartar 1/2 Teaspoon Salt 1 cup softened butter 2 cups sugar 2 eggs 1/4 cup milk 1 teaspoon vanilla 3 tablespoons sugar 1 teaspoon cinnamon Oven 375 degrees. Grease a cookie sheet. Stir together flour, soda, cream of tartar, and 1/2 teaspoon salt. Beat butter for 30 seconds; add the 2 cups of sugar and beat till fluffy. Add eggs, milk, and vanilla; beat well. Add dry ingredients to mixture, beating well till well combined. Form dough into 1" balls; roll in a mixture of the 3 teaspoons sugar and cinnamon. Place balls 2" apart on a cookie sheet; flatten slightly. Bake in a 375 degree oven about 8 minutes or till light golden. Makes about 60! -- Topics Include: Why use the term "Brain Disorder"? What personal interactions has she had with presidential candidates in Iowa? How can the court system support those with who struggle with their diagnosis? What does healing mean to you? Shownotes: "Crazy: A Father's Search Through America's Mental Health Madness" by Pete Earley "I'm Not Sick, I Don't Need Help" by Dr. Xavier Amador NAMI - National Alliance on Mental Illness. There are also links to state-specific NAMI sites Joe Biden Mental Health Platform Next Episode: Parenting During a Pandemic
This episode is a feature from our YouTube channel Caring with Bambu. Is your partner really in denial or is it actually anosognosia? Hmm, let's find out! The direct video link can be found HERE. LETS CONNECT: Website Bambu Care Champions Membership ($4.99 / month) Facebook Page Instagram Youtube Email us at podcast@whatthedementia.com WORK WITH US: Schedule a Bambu Talk Schedule a Care Consultation MUSIC CREDIT: Listen To SpillageVillage - Tropical Landing Pop Songs At Looperman.com --- Send in a voice message: https://anchor.fm/whatthedementia/message
What does ansognosia mean and how does it impact dementia? Is it better to be unaware of what's happening in your body? Hear my thoughts on this week's podcast. Read the original post here: https://rachaelwonderlin.com/2018/05/13/anosognosia-what-is-it/ and learn about my sponsor, Flying Angels, on flyingangels.com Are you enjoying my podcast? Please rate & review! Learn more about how I can help your organization here: https://rachaelwonderlin.com/workwithme/
A lot of stroke survivors I talk with describe themselves as "Lucky." I don't want to minimize the trauma or struggles that many survivors face. There are real challenges, and I don't recommend anyone go out and acquire a stroke, but luck is still a common theme. In my experience, I say I'm lucky because I have a great partner who has stuck with me. I got great care at the hospital. My stroke left me with physical disabilities, but no significant cognitive or language issues. And it opened my eyes to this whole fascinating world and community. I've talked with other folks who feel lucky because they have some cognitive challenges but no physical deficits. In episode 65, Joe Borges described his stroke as a blessing because of the way it rebooted his life. For former OT and corporate consultant, Janet Douglas, stroke was A Wonderful Stroke of Luck. And she wrote the book on it. Jan started her career working in OT in her native England. She would go on traveling the world with the World Health Organization, meet her future husband, become a Director at the Rehab Institute of Chicago, transition the world of corporate HR consulting, and in September of 2002, have a massive stroke. I find the pats people take to be fascinating. It seems completely random to go from OT into consulting at first glance. Take a deeper look, though, and it makes sense. Jan tells us in this interview how the transition was really just another type of OT, just on a larger scale. Bio Jan Douglas trained as an occupational therapist in her native England in the 1960s. The patients she least enjoyed working with were those who had suffered strokes. She found them slow, lacking in motivation and emotionally unstable. She specialized in the treatment of hand injuries, working at the Royal National Orthopaedic Hospital in London and then served with the World Health Organization in its Africa and Southeast Asia regions. While working in Thailand, she met her American husband, an oral surgeon. After moving to the United States, Douglas became Director of Occupational Therapy Education at the Rehabilitation Institute of Chicago and pursued a master’s degree in public health. After graduating, she worked at Grant Hospital of Chicago, first as Director of Occupational Therapy and then as the leader of a hospital- based occupational health program, providing services to industry, local government and universities. From there she joined the world’s largest human resources and risk management consulting firm. As a global business leader, she worked with public and private employers, government agencies and healthcare systems, to improve their human capital management. She currently provides human resources support to a refugee resettlement agency. Survivor Gift Shops Are you or do you know a Stroke survivor with an Etsy or similar online gift shop? Let me know. As we get closer to the Christmas season, I'm planning to feature survivor shops on a future episode so folks can buy gifts and support the community. Just email Bill@Strokecast.com. Giveaway We're giving away a copy of Jan's book to one listener. Share this episode on your social media with the link http://Strokecast.com/AWonderfulStrokeOfLuck and use the hashtag #Strokecast by the end of October. I'll search the hashtag at the beginning of November and pick one winner at random. Good luck talking about luck! Hack of the week If your doctor says you can drink wine, then YAY! Now you have to open the bottle. Jan discovered that a wine bottle fits in the garbage disposal in her sink securely. Now she puts a bottle in there and can use a corkscrew one handed to open the bottle. Links A Wonderful Stroke of Luck Website http://AWonderfulStrokeofLuck.com Publicist Tom tom@AWonderfulStrokeofLuck.com Jan's email JanDouglas@Comcast.net A Wonderful Stroke of Luck on Amazon https://www.amazon.com/Wonderful-Stroke-Luck-Occupational-Therapist-ebook/dp/B07J67WQ13 Jan on 9&10 News https://www.9and10news.com/2019/08/23/a-wonderful-stroke-of-luck-surviving-a-stroke Refugee One http://www.refugeeone.org/ Refugee One on Facebook https://www.facebook.com/RefugeeOne/ Refugee One on Twitter https://twitter.com/refugee_one Refugee One on Instagram https://www.instagram.com/refugeeone/ Shirley Ryan Ability Lab (formerly RIC) https://www.sralab.org/ My Year Off on Amazon https://www.amazon.com/My-Year-Off-Recovering-Stroke/dp/0767904001 Iowa Writer's Workshop https://writersworkshop.uiowa.edu/ Homonymous Quadrantanopsia https://link.springer.com/referenceworkentry/10.1007%2F978-0-387-79948-3_740 Anosognosia https://www.healthline.com/health/anosognosia Julie Halpern Reviews A Wonderful Stroke of Luck http://windycityreviews.org/book-reviews/2019/6/3/book-review-a-wonderful-stroke-of-luck.html Where do we go from here? Check out the website http://AWonderfulStrokeofLuck.com to learn more about Jan Douglas and her book or to buy it on Amazon. Share this episode to tell more folks about Jan's story and potentially win your own copy of the book with the link http://Strokecast.com/AWonderfulStrokeOfLuck Let me know about survivor run gift sources at Bill@Strokecast.com Follow me on Instagram at http://Strokecast.com/Instagram Don't get best…get better.
Links and show notes at DementiaSherpa.com/Episode99. Phil Gutis, our Assistant Sherpa, is with us again today. We answer a listener question about anosognosia, a condition in which a person is unaware they have another condition (such as Alzheimer's). Phil ponders if he'd prefer knowing his diagnosis or the bliss of ignorance. And we talk about what we're doing for The Longest Day, which is just around the corner (on June 21st!).
Sharon Hall will be joined by Rebekah Wilson, MSW (agingcarecoach.com), to discuss what makes families scratch their heads and be resentful, anosognosia. When someone is diagnosed with FTD, they often say there is nothing wrong with them, you are just trying to make them sick. They insist they can drive, grocery shop, work, and be totally independent. Yet, they have accidents, bring home only cookies from the store, get fired due to someone else's fault, and leave the front door wide open when they leave the house. We will discuss this weird word, anosognosia, and give advice on how to work around it when you have an FTDer who is "just fine" and will not give up driving, independence, or applying for jobs.We will realistically discuss what "might" work and definitely discuss what will "never" work. --- Send in a voice message: https://anchor.fm/caring-conversations/message
Sharon Hall will be joined by Rebekah Wilson, MSW (agingcarecoach.com), to discuss what makes families scratch their heads and be resentful, anosognosia. When someone is diagnosed with FTD, they often say there is nothing wrong with them, you are just trying to make them sick. They insist they can drive, grocery shop, work, and be totally independent. Yet, they have accidents, bring home only cookies from the store, get fired due to someone else's fault, and leave the front door wide open when they leave the house. We will discuss this weird word, anosognosia, and give advice on how to work around it when you have an FTDer who is "just fine" and will not give up driving, independence, or applying for jobs.We will realistically discuss what "might" work and definitely discuss what will "never" work. --- Send in a voice message: https://anchor.fm/caring-conversations/message
When people take certain types of psychedelic drugs, they enter into a mystical state characterized by a depersonalized fusion with a divine light. Proponents of psychedelic use claim that such states (which are also at the heart of many Eastern religious practices) are ultimately good for humanity and society. In addition, some scientists claim that mystical states, when induced by psychedelics, can have curative effects (e.g., reducing anxiety and depression). In this episode we deconstruct the psychedelic mystical experience and analyze the popular claim that such experiences are beneficial. Bibliography Books: Bancarz, S. & Peck, J. (2018). The Second Coming of the New Age: The Hidden Dangers of Alternative Spirituality in Contemporary America and Its Churches. Huxley, A. (1954). The doors of perception. Leary, T. (1980/1998). The Politics of Ecstasy: Fourth Edition. Ronin Publishsing. Leary, T., Metzner, R. & Alpert, R. (1992/2017). The psychedelic experience: A manual based on the Tibetan Book of the Dead. Mech, Timothy J. (2012). Pastors and Elders: Caring for the Church and One Another. Peterson, Eugene H. (1991). Answering God: The Psalms as Tools for Prayer. Strassman, R. (2001). DMT: The spirit molecule. Strassman, R. (2014). DMT and the soul of prophecy. Journal Articles: Anderson, T., Petranker, R., Rosenbaum, D., Weissman, C. R., Dinh-Williams, L. A., Hui, K., ... & Farb, N. A. (2019). Microdosing Psychedelics: Personality, mental health, and creativity differences in microdosers. Psychopharmacology, 236(2), 731-740. Griffiths, R. R., Johnson, M. W., Carducci, M. A., Umbricht, A., Richards, W. A., Richards, B. D., ... & Klinedinst, M. A. (2016). Psilocybin produces substantial and sustained decreases in depression and anxiety in patients with life-threatening cancer: A randomized double-blind trial. Journal of psychopharmacology, 30(12), 1181-1197. Gurin, L., & Blum, S. (2017). Delusions and the right hemisphere: a review of the case for the right hemisphere as a mediator of reality-based belief. The Journal of neuropsychiatry and clinical neurosciences, 29(3), 225-235. Polito, V., & Stevenson, R. J. (2019). A systematic study of microdosing psychedelics. PloS one, 14(2), e0211023. Ramachandran, V. S. (1995). Anosognosia in parietal lobe syndrome. Consciousness and cognition, 4(1), 22-51. Smith, S. D., Dixon, M. J., Tays, W. J., & Bulman-Fleming, M. B. (2004). Anomaly detection in the right hemisphere: The influence of visuospatial factors. Brain and cognition, 55(3), 458-462. News: National Post: Is microdosing LSD a solution to the 'crisis of meaning' in modern life? Videos: NBC News New York: As 'Microdosing' Explodes in Popularity, New Look at Benefits, Side Effects of Daily Psychedelics Use Ted2008: Jill Bolte Taylor - My Stroke of Insight YouTube: Russell Brand Wants to Know About DMT | Joe Rogan YouTube: Jordan Peterson - Psilocybin Research YouTube: Yoda - Attachment leads to jealousy YouTube: Excited Delirium - Man ingests large quality of hallucinogenic mushrooms WHERE TO FIND US Website: notconformed.show notconformedshow.ca Email: info@notconformedshow.ca RSS Feed: (NEW! SimpleCast 2.0) https://feeds.simplecast.com/Q7v05iI6
Lack of Awareness Denial and Anosognosia
Today Dr. Ken Campos is joined by Dr. Jim Colbert. Dr. Colbert is a seasoned clinical psychologist with a small private practice in Southern California. He trained at UCLA and lived and worked in the Los Angeles area many years. Dr Colbert works with families as well. His area of special expertise is with both younger and older adults with anxiety and depression and the area of memory assessment & enhancement. His therapy emphasizes the personal life journey and restoring the locus of control to the individual. Please see his website for more information, www.jamesncolbertphd.com. Dr. Colbert has two daughters who have schizophrenia. He worked for the Los Angeles Probation Department for a time and then private practice. He has been married 3 times. He became disabledat the age of 28. That ended his first marriage. Dr. Colbert's first daughter had her first major breakdown in her early 20's. She responded well to recommendations he had. She was able to function well with medication during the first period. At one point she attempted suicide. He recounts the aftermath of that suicide attempt and explains that at the end of her life she died from cancer. This daughter became the leader of schizophrenic's anonymous and began advocating for people to take their medicine. Dr. Colbert read to her nightly towards the end of her life. Dr. Colbert speaks of his second daughter with schizophrenia. She also had thyroid problems. She was not one to take the medication. She used to work for the Los Angeles Times and developed the idea that there was a conspiracy with the Los Angeles Times ownership and that she was part of it. A friend called him and let him know of the difficulty hsi daughter was experiencing. She didn't resist him being involved with the care, but she resisted almost all forms of treatment. She had a number of breakdowns where she would have hallucinations. At some point she wrote a threatening letter to President Bill Clinton. She was interviewed by the Secret Service. Dr. Ken recounts when the US Secret Service came to his facility for a talk. There are a couple of hundred people in the United States who have a severe mental illness and have made threats against the US President. The agents said that when the President switches the new focus goes to the new President. It isn't the man himself that causes the threats. Dr. Colbert says he tried to get his second daughter to go to a medical doctor. It was during one of those visitis they discovered a major thyroid deficiency. Dr. Colbert recalls thinking that maybe with the proper thyroid medication, his daughter might be back to normal. She refused the medication. He decided to use every power of his being to get her to take that medication. Dr. Ken discusses how common this situation Dr. Colbert described is. They've come to believe some people have this as a feature of schizophrenia. Dr. Colbert describes how he helped his daughter find her own place, but after she was settled in, she decided to have nothing to do with him. This is also very common behavior in schizophrenic patients. He discusses losing that connection with his adult child. He says parents strongly want to be with them because they still feel that parent-child relationship. At the same time, there was slight relef because her denial of time with him allowed him to avoid dealing with her issues. He describes how he spent two years in psychogtherapy as a patient dealing with his feelings about this. Dr. Ken discusses how developing self-confidence through therapy is very helpful. Support groups are very important as well. Dr. Colbert describes the experience as a parent as overwhelming. His own experiences gave him a connection to other parents going through the same thing.
Basics Brain lesion = a group of brain cells that look different from surrounding cells on a brain scan Dark lesions - an area where the brain cells are missing or an area where signal is not firing (damaged cells) Light lesions - an area where the signals are firing at the wrong times (like a shorted out wire). Seizure - when the brain fires the electricity at the wrong time. Lesions around the brain A lesion in the Parietal lobe could affect how the body translates sensations (i.e. pain). These lesions are usually caused by injury or stroke. If there is a lesion in the optical lobe of the brain (the area that "sees" what your eyes are looking at), then the signals from the eyes may not come through, and therefore the parietal cannot help map what you were looking at once it's not there anymore. Sensory seizures - feeling things on you or touching you that aren't really there. (unsure if this is related to the auras that come before migraines). No medication necessary. Extinction phenomenon: thinking that a sensation stopped before it really did. You body can't translate two messages of the same type at the same time. Like when you try to locate the same place on each side of your body (i.e. making pigtails even). Some Big Words Dyslexia: can be related to written language, spoken language, or any other message being translated as language Dysphasia or Aphasia: mixed up or missing words Dyscalculia: it's hard to math. Difficulty estimating distances, spacial mapping, and time passage. Dana White of A Slob Comes Clean talks about TPAD (Time Passage Awareness Disorder) Apraxia: unable plan what you want your body to do in order to make your body do it. The deeper the path the more "natural" the action is. Muscle memory is just an extremely well-developed motor path, so that you can even not do that action for a while, and when you do it again, you don't have to "relearn" it. If this is caused by a stroke, therapy can help try and re-route the information. Apraxia can affect gross motor movements (large movements with your body) - aka global apraxia, or it can affect speech motor planning. Gerstmann Syndrome: no motor path to write, or math, or to feel and use your fingers as separate digits. Also involves a left-right mix up. In adults, it's the results of a stroke. In kids, they have not a clue. Therapy can help kids get past the motor issues, but not the mathing issues. Constructional apraxia: know how blocks should fit together, but the brain can't make their body build it. Dressing apraxia: know how clothes should be worn and where it goes, but the brain can't make the body dress itself. This shows up in dementia and Alzheimer's a lot. Amorphosynthesis - your brain is not aware of some part of your body. Usually a symptom after as stroke. Another symptom of a stroke is when a person is unaware of one-half of their visual field. So they will only write on one half of the paper (the half they can see) or read only one half of the page of a book. Anosognosia - a person is not aware that they have a disorder, disease, or disability. This is not just denial. The area of their brain that would recognize "I'm sick" or "I'm hurt" doesn't work. Connect with me Support us on Patreon *NEW* Join the Pharmacist Answers Podcast Community on Facebook Subscribe: iTunes, Stitcher, GooglePlay, TuneIn Radio Like the Facebook page Music Credits: “Radio Martini” Kevin MacLeod (incompetech.com) Licensed under Creative Commons: By Attribution 3.0 http://creativecommons.org/licenses/by/3.0/
Why have parents been kept out of treatment, and how has it changed? Host Laura Collins Lyster-Mensh as she asks experts from around the world why including parents during eating disorder treatment was once controversial. Also: eating disorder news, and Laura’s favorite word of the week, “anosognosia.” Details and show notes at: http://www.circummensam.com/new-plates-podcast.html
Episode 3 of Off Your Rocker where PJ and Steven talk about attention seeking, Anosognosia, and of course we vent our frustration. Shout out to Takethis.org An amazing organization trying to help people with mental illness and educate those who lack awareness.
Agradece a este podcast tantas horas de entretenimiento y disfruta de episodios exclusivos como éste. ¡Apóyale en iVoox! LA SOCIEDAD SE ENFERMÓ, TODOS LO VEN MENOS LA GENTE QUE LO VOTÓ - ANOSOGNOSIA, El síntoma que describe la medicina planteado en o socio económico cultural. Hablamos de ello vinculado a los buitres, a la metafentamina, a la banalidad del mal y otras yerbas. Al fin! música en castellano estrenada en esta semana. Para los quejosos algo de folclore. Por supuesto, si pasamos floclore tenía que ser un gato. Audios de Moreno, y explicaciones del neoliberalismo. Y más... mucho más. PD: aprovechamos a mandarle un saludo al creador de las actualizaciones windows, que desconfiguró todo el audio de la PC de transmisión, no tomó el micrófono y tomó audio del mic el interno de la notebook. Agradecemos especialmente alos que hicieron el aguante sin chistar por el mal sonido en vivo. Y especialmente a quienes comparten el enlace. Escucha este episodio completo y accede a todo el contenido exclusivo de Los Gatos del Muro. Descubre antes que nadie los nuevos episodios, y participa en la comunidad exclusiva de oyentes en https://go.ivoox.com/sq/160765
LA SOCIEDAD SE ENFERMÓ, TODOS LO VEN MENOS LA GENTE QUE LO VOTÓ - ANOSOGNOSIA, El síntoma que describe la medicina planteado en o socio económico cultural. Hablamos de ello vinculado a los buitres, a la metafentamina, a la banalidad del mal y otras yerbas. Al fin! música en castellano estrenada en esta semana. Para los quejosos algo de folclore. Por supuesto, si pasamos floclore tenía que ser un gato. Audios de Moreno, y explicaciones del neoliberalismo. Y más... mucho más. PD: aprovechamos a mandarle un saludo al creador de las actualizaciones windows, que desconfiguró todo el audio de la PC de transmisión, no tomó el micrófono y tomó audio del mic el interno de la notebook. Agradecemos especialmente alos que hicieron el aguante sin chistar por el mal sonido en vivo. Y especialmente a quienes comparten el enlace.
MONDAY, MARCH 11, 2013, 3:30 PM PT/6:30 PM ET Our incredible special guest tonight is Dr. Mary Edmondson. She is a physician/psychiatrist from Duke University, North Carolina and a founder of the North Carolina Center for the Care of Huntington's Disease NC-CCHD). She will be here to talk about strategies on how to communicate with people who are experiencing anosognosia [medical term for lack of awareness] and strategies to keep them engaged...with family and medical care. Dr. Edmondson also comes from a Huntington's family, so she knows our struggles and fears. She is here to help us tonight and we thank her for her time. Get your questions ready and send them to us in the chat room or email: melissa@help4hd-international.org
MONDAY, MARCH 4, 2013 3:30 PM PT/6:30 PM ETDr. Goodman will be talking about:Anosognosia is the medical term for lack of self awareness of one's own disability or disease symptom. This condition, which is different from denial, occurs in many brain diseases including Huntington's disease (HD). Anosognosia is caused by nerve circuit damage to brain structures that interpret and organize information. Lack of awareness in HD creates problems that can range from refusal of therapy: "I don't need treatment if I'm not ill" to more extreme situations that can be dangerous for HD individuals or others. Families know that dealing with this symptom when it is severe -- is like walking through an emotional minefield, knowing the explosion is likely to come.Visit her website for the article she just posted: http://hddrugworks.org/
OUR COMMON GROUND with Janice GrahamTonight : OPEN MIC SATURDAY Breaching the topic of Anosognosia . A condition in which a person who suffers disabilty to brain injury where persons seem unaware of or denies the existence of their handicap. Anosognosia, meaning "unawareness of illness" "Speaking Truth to Power and Ourselves" Email Us: OCGINFO@ourcommonground.com Twitter: @JaniceOCG l Facebook: OUR COMMON GROUND with Janice Graham l COMMUNITY FORUM l Website