Podcasts about tourette syndrome association

How would you cope if your child sporadically swore at strangers or made obscene gestures at family dinners? Mandy Maysey is a mum who understands how challenging it can be to raise a child with Tourette's Syndrome. She has three children with the syndrome and is President of Tourette Syndrome Association of Australia (TSAA),  This week, Mandy explains what it's like to live with three kids with different presentations of Tourette's Syndrome and reveals the unique perspectives she's gained through her roles as both a parent and an advocate.  LINKShttps://www.instagram.com/tsassociation_australia/   https://tourette.org.au/ See omnystudio.com/listener for privacy information.

Don't hose me baby!!!!! Drew Nieporent, one of America's most respected and celebrated restaurateurs, is the founder and inspiration behind the Myriad Restaurant Group, which operates Tribeca Grill, Nobu New York City, Nobu Fifty Seven, Nobu London, Nobu Next Door, Bâtard, Porsche Grille at Citi Field, and Crush Wine & Spirits. Over the last 30 years, Myriad has opened and operated over 39 restaurants around the world, including Seattle, Louisville, Providence, Boca Raton, London, San Francisco, Moscow, Citi Field, home of the New York Mets in Flushing, New York.Nieporent's first restaurant, the groundbreaking Montrachet (1985), earned three stars from The New York Times and kept that rating for 21 years. In 2008, the restaurant reopened as Corton, maintaining its three New York Times stars and receiving two Michelin stars with chef-partner Paul Liebrandt at the helm. In May of 2014, Nieporent reopened the space as Bâtard with the help of chef- partner Markus Glocker and partner John Winterman. Earning three stars from The New York Times, New York Magazine, and a coveted Michelin star, the restaurant opened to critical acclaim. As 2014 came to an end, Bâtard landed at the top of several end-of-year lists, including the number one spot on The New York Times' list of "The 10 Best New Restaurants of 2014". In May of 2015, the restaurant won the James Beard award for “Best New Restaurant”.Tribeca Grill (1990), with partner Robert De Niro and an all-star roster of investors including Bill Murray, Sean Penn, and Mikhail Baryshnikov, opened to national acclaim and continues to be one of New York's landmark restaurants.In 1994, again with partner Robert De Niro and sushi master Nobu Matsuhisa, Drew launched Nobu New York City to worldwide acclaim. Nobu NYC, Next Door Nobu, and Nobu Fifty Seven have all earned the coveted three-star rating from The New York Times. Nobu NYC was voted Best Restaurant in America by The James Beard Foundation. Nobu has gone on to open restaurants in all parts of the world.Also in 1994, Nieporent was one of the few American restaurateurs to go bi-coastal. In collaboration with Robert De Niro, Robin Williams, and Francis Ford Coppola, he opened Rubicon in San Francisco.Myriad's excellence in wine service is widely acknowledged. It is the only restaurant group to earn three coveted Grand Awards from Wine Spectator Magazine - for Rubicon, Montrachet, and Tribeca Grill. In 2005, Myriad opened Crush Wine & Spirits, which was named the best new wine shop by Food & Wine Magazine.Nieporent graduated in 1973 from Stuyvesant High School and in 1977 from Cornell University with a degree from the School of Hotel Management. While at Cornell, he worked on the world class cruise ships Vistafjord and Sagafjord. In 1978, he began his management career with Warner Le Roy at New York City's Maxwell's Plum and Tavern On The Green. He then worked at the prestigious French restaurants Le Perigord, La Grenouille and Plaza Athenee's Le Regence.Drew donates his time to dozens of charities. He is on the board of Madison Square Garden's Garden of Dreams Foundation, Citymeals-on-Wheels, and DIFFA, an Honorary Chair of the City Harvest Food Council and Culinary Director of the Jackson Hole Wine Auction. He has co-chaired SOS's Taste of the Nation event in New York City since 1997. He has been honored by Careers Through Culinary Arts Program (2009), American Heart Association (1999), the Tourette Syndrome Association (2000), Food Allergy Initiative (2001), American Liver Foundation (2003), Cancer Research & Treatment Fund (2005), and Kristen Ann Carr Fund (2006). Drew is in great demand as a spirited, highly effective auctioneer at charity events.

Become a Paid subscriber of the Adam Farris Podcast https://podcasters.spotify.com/pod/show/adam-farris/subscribe Hi, My name is Adam Farris and I have Tourette Syndrome, But Tourette Syndrome does NOT have me. I was diagnosed with #TouretteSyndrome at the age of 6, And I am 35 years old now. In my teenage years, my #Tourette was out of control. I had loud hooting and shouting noises. When I asked my parents if I could go out to public places like movie theaters and restaurants, they said yes. Whenever someone asked me about the noises or made a rude comment, I would just explain to them that this is who I am and this is what I have. If they would like to go somewhere else, then they can, but I am staying here and enjoying myself. Tourette Syndrome has affected me in many ways. One of my former doctors put me on a lot of high-dose anti-psychotic medications for a long time, which then made me like a zombie pretty much throughout the day. I was sleeping too much and was not able to concentrate because of the medications I was on.  Eventually, this made my hands shake really badly.  We switched doctors and my doctor now is really great! I also work at a retail store here in Houston, Texas as a cashier. Sometimes you may see me struggling at work. I may ask someone to help me out with bagging or help me bag the breakable items.  Please respect my request as this can be hard for me to accomplish due to my shakiness in my hands.  Having tics is a little bit like having hiccups. Even though you might not want to hiccup, your body does it anyway. Sometimes people can stop themselves from doing a certain tic for a while, but it's hard. Eventually, the person has to do the tic. I have Tourette Syndrome, but Tourette Syndrome does not have me. ” – Adam Farris FYI You Are Not Alone if you are an individual with Tourette syndrome, there are support groups and other similar groups that you can join. do not feel left out, and don't allow anyone to keep you isolated. please get out into the public, and go to restaurants and if someone makes a comment or a grimace just let them know that I have Tourette's and this is what is called, and that you cannot help it. According to the CDC, https://www.cdc.gov/ncbddd/tourette/facts.html Tourette Syndrome (TS) is a condition of the nervous system. TS causes people to have “tics”. Tics are sudden twitches, movements, or sounds that people do repeatedly. People who have tics cannot stop their body from doing these things. For example, a person might keep blinking over and over. Or, a person might make a grunting sound unwillingly. Having tics is a little bit like having hiccups. Even though you might not want to hiccup, your body does it anyway. Sometimes people can stop themselves from doing a certain tic for a while, but it's hard. Eventually, the person has to do the tic. Ways to support and help out Tourette's and The TS Community: 1. Get Involved with the Tourette Syndrome Association of America https://tourette.org/get-involved/give-donate/  2.  take the Tourette Syndrome pledge, To stop using Tourette Syndrome as a punchline. https://tourettepledge.org/  3. Join your local Tourette chapter https://tourette.org/resources/local-support/  4. Register to become a brain Bank donor as an individual with Tourette syndrome. And donate your brain whenever you pass away to research Tourette's https://tourette.org/about-tourette/overview/brain-bank-2/  5. Sponsor or Join a Team Tourette Event: https://www.teamtourette.org/  Please subscribe to my podcast, thank you for your support. https://podcasters.spotify.com/pod/show/adam-farris/subscribe Also Remember to visit Adam Farris online  https://adamfarris.net/ https://linktr.ee/adamfarris123 --- Send in a voice message: https://podcasters.spotify.com/pod/show/adam-farris/message

Getting a tic (a brief motor movement or vocalisation) is actually super common but the use of a certain social media platform is starting to create them faster and in larger numbers in groups not usually affected. Today we look at the impact of a platform like TikTok on vulnerable minds and how a certain genre within the platform's users leads to those who already suffer from tics to be triggered. Subscribe to Mamamia GET IN TOUCH Feedback? We're listening! Call the pod phone on 02 8999 9386 or email us at podcast@mamamia.com.au CONTACT US Got a topic you'd like us to cover? Send us an email at thequicky@mamamia.com.au CREDITS  Host: Claire Murphy With thanks to:  Haze Elford - Haze has Tourettes Syndrome and uses her experience to volunteer with the Tourette Syndrome Association of Australia, she is also a regular TikTok user. Professor Russell Dale - Clinical Director of the Kids Neuroscience Centre and a paediatric neurologist based at the Children's Hospital at Westmead. *Kyra - Mum of a young boy who developed tics *Name changed for privacy Producer: Claire Murphy Executive Producer: Liv Proud Audio Producer: Thom LionBecome a Mamamia subscriber: https://www.mamamia.com.au/subscribeSee omnystudio.com/listener for privacy information.

澳大利亚妥瑞氏症协会（The Tourette Syndrome Association of Australia）呼吁为学校提供更多资金，改善教师的培训项目，同时表示患有妥瑞氏症的儿童通常被视为行为不当，他们的病情没有得到必要的理解。

The Tourette Syndrome Association of Australia says children with Tourette Syndrome are often treated as if they are misbehaving, rather than with the necessary appreciation for their condition.

Tourette Syndrome Awareness Week is running from 2 - 8 May 2022! So, Janine and Aleena are raising understanding and busting some myths around Tourette Syndrome, especially as Janine's little boy has this condition. The sisters are joined by their first ever guest - Seamus Evans! Seamus is an awesome TV and radio broadcaster and now passionate public speaker. As an ambassador for the Tourette Syndrome Association of Australia (TSAA), Seamus speaks about his personal experience with Tourette Syndrome, and how he has learned to manage the condition, and ultimately turn it into his superpower. Aleena and Janine share insights from the science on Tourette Syndrome, including the prevalence and underlying genetics. Aleena, Janine and Seamus all then stick around to nerd out in the inner square segment, which leads to much "Type 1 fun". You'll have to listen in to understand wtf that means ;) Full show notes at Sister Doctor Squared website. Mastering of this episode, plus intro and outro music, by the ever-talented Dr Adrian Diery

The Tourette community lost a hero Dec. 15, someone I named on the very first episode (Season 1, Episode 0) of Tourette's Podcast. Steve Bachner was my first frame of reference for TS. Seeing him on an episode of 20/20 in the late 1980s was my first time seeing someone else with the disorder, and there he was, Steve, being followed by John Stossel and cameras, in a shopping mall, Steve ticcing to the fullest. I remember being a little kid guffawing at people's reactions to Steve, with a least one citizen observer telling the show he assumed he was probably high on drugs. The observer wouldn't have guessed Steve was living with a disorder that throws involuntary sounds and movements. I knew all about it. I met Steve not long after at a national Tourette Association of America (then called the Tourette Syndrome Association) conference and confirmed his heroism to me. Steve was kind, funny, witty, and willing to be talk to me like a human being. I never forgot it. We reconnected after I started Tourette's Podcast in 2018 and always talked about doing an interview. Sadly, Steve's health was declining; scheduling would be hit or miss, with very wide latitude granted to all the rest and recuperation time he needed. But we eventually, in May 2020, found the chance to record. It wasn't our dream interview; it would have been but the phone line was noisy and made listening a challenge. But, after some audio cleanup, and now in Steve's memory, it's here and it covers a lot of amazing ground. This is old-school Tourette Syndrome, with critical cracks at sensational coverage from Stossel, Geraldo, Springer and others who orbited Steve's disorder. They got to know his Tourette (or maybe a thin dimension of it) but did they ever get to know him as a person? (His friend Robin Williams did; Steve describes him here as a "soulmate.") I'm so lucky to have counted him a hero and saddened at his absence now. So this one is dedicated to the loving memory of Steve Bachner.

This week we are talking Tourette Syndrome.  Lou talks to Lydia Roberts, mum to Ruari and her twin daughters.  Ruari is neurodivergent.  He has ADHD and Tourette's Syndrome.  Lydia is a brilliant parent advocate and actively works to educate the community about Tourette Syndrome.  The episode opens with a sound bit from an ABC Perth radio segment where Lydia and Ruari articulate the world of Tourette.  Ruari's words are absolutely imperative listening.  He describes his tics, how they feel, when they occur, what it's like for him.  It's such a wonderful insight.  PLEASE SUBSCRIBE, RATE AND REVIEW!Please join the Square Peg Round Whole podcast Facebook page: https://www.facebook.com/groups/536225331089755Please like the Facebook PUBLIC page: https://www.facebook.com/Square-Peg-Round-Whole-Public-PAGE-108284341497676Patreon membership:  Patreon members receive early release of episodes and assistance with advocacy efforts.  If you would like to support me to pay for this podcast production and help me realise my dream to work more in this field, please feel free to become a patreon member:  https://www.patreon.com/squarepegroundwholeInstagram: @squarepegroundwholepodcastTwitter: @PegWholeWebsite: https://www.squarepegroundwhole.com.au/Resources mentioned in this episode:Tourette Syndrome Association of Australia Inchttps://tourette.org.au/Tourette Syndrome Association of Australia Inc Facebook Grouphttps://www.facebook.com/TouretteSyndromeAssociationOfAustralia/

In this episode of Psych Matters, Dr Andrew Amos and Professor Valsamma Eapen discuss the neurodevelopmental disorder, Tourette Syndrome.Professor Valsamma Eapen is Professor and Chair of Child and Adolescent Psychiatry, UNSW Sydney and Head, Academic Unit of Child Psychiatry and Director of BestSTART Child Health Academic Unit at South West Sydney. She is Director of Early Years Program, Autism Cooperative Research Centre and Stream Director of Early Life Determinants of Health Clinical Academic Group within SPHERE, a NHMRC accredited Advanced Health Research Translation Centre.  She is known internationally for her expertise in neurodevelopmental disorders such as autism and Tourette Syndrome. She is part of major research programs totalling 40 million in funding and has authored over 300 peer reviewed publications.Links:Gilles de la Tourette syndromehttps://www.nature.com/articles/nrdp201697Nature Reviews Disease Primers 3, Article number: 16097 (2017)volume 3, Article number: 16097 (2017) https://www.nature.com/nrdp/Tourette Syndrome in children. Valsamma Eapen and Tim Usherwood, Australian Journal of General Practice , 50 (3), 120-125 (2021).https://www1.racgp.org.au/ajgp/2021/march/tourette-syndrome-in-children Children with Tourette Syndrome and Covid-19https://tourette.org.au/wp-content/uploads/2020/04/TS-COVID-19_Resource_2020.pdf Tourette Syndrome Association of Australiahttps://tourette.org.au/ Tourette Association of Americahttps://tourette.org/ Feedback:If you have a topic suggestion or would like to participate in a future episode of Psych Matters, we'd love to hear from you.Please contact us by email at: psychmatters.feedback@ranzcp.orgDisclaimer:This podcast is provided to you for information purposes only and to provide a broad public understanding of various mental health topics.  The podcast may represent the views of the author and not necessarily the views of The Royal Australian and New Zealand College of Psychiatrists ('RANZCP'). The podcast is not to be relied upon as medical advice, or as a substitute for medical advice, does not establish a doctor-patient relationship and should not be a substitute for individual clinical judgement.  By accessing The RANZCP's podcasts you also agree to the full terms and conditions of the RANZCP's Website. Expert mental health information and finding a psychiatrist in Australian or New Zealand is available on the RANZCP's Your Health In Mind Website.

Seamus Evans, an ambassador for the Tourette Syndrome Association of Australia, is a standup comedian, television and radio personality, and keynote speaker working in his experience with Tourette and the boundaries it seemed to set for him -- which he essentially laughed right past. Not that it was overnight-easy. Not that he didn't have the challenges and self-doubt and depression and everything else on the TS dinner menu. He brought all of that along and today shares what he figured out about himself. His story is so kinetic that we need a part-two. Plus: a listener question about music and concentration. https://www.seamusevans.com/ TAA's YouTube page Support the show https://www.patreon.com/tourettespodcast Tourette's Podcast is made possible by the Tourette Association of America, tourette.org. Support! You can give Tourette's Podcast individual support at https://www.patreon.com/tourettespodcast Tourette's Podcast Discussion Group on Facebook

Pt. 1 Jeffrey Kramer played Deputy Jeff Hendricks in Oscar-winning horror/thriller movie Jaws; he reprised the role in the sequel Jaws 2; in 1976, Jeffrey guest starred in Baretta and in Clue! Amazing guest! shark-con.com/jeffrey-kramer-jaws/ @jeffreykramerofficial @marylinartist Jeffrey made his first appearance on the TV series Barney Miller starring in the episode Snow Job as the “Stick Up Man”. Kramer, a Fox TV executive before becoming an independent producer based at CBS TV Studios, began his career as an actor, working on stage, in TV series on such shows as Happy Days and Laverne and Shirley. Jeffrey is a producer and or studio executive of Emmy Winning/Golden Globe Winning - Top TV shows: X-Files, The Practice, Ally McBeal, Chicago Hope & Living Color. His charity: Tourette Syndrome Association. *Thank you for listening & supporting the podcast :) https://www.buymeacoffee.com/sneakies https://www.paypal.com/paypalme/anonymouscontent *Royal Girl* Funds will go to sound and editing. Paypal (friends & family) petcarebuddies@gmail.com https://www.patreon.com/sneakies Instagram @marylinartist LinkedIn: Marylin Hebert Please Subscribe to our YouTube:) https://www.youtube.com/user/Fellinijr/videos Zombie Diaries: https://youtu.be/tBmgi3k6r9A Our books :) Young Adult wizard book series: "Margaret Merlin's Journal" by A. A. Banks at Amazon! :) https://www.instagram.com/margaretmerlinsjournal/ MMJ Book I The Battle of the Black Witch https://www.amazon.com/Margaret-Merlins-Journal-Battle-Black-ebook/dp/B01634G3CK MMJ Book II Unleashing the Dark One --- Support this podcast: https://anchor.fm/filmaddicts/support

Pt. 1 Jeffrey Kramer played Deputy Jeff Hendricks in Oscar-winning horror/thriller movie Jaws; he reprised the role in the sequel Jaws 2; in 1976, Jeffrey guest starred in Baretta and in Clue! Amazing guest! shark-con.com/jeffrey-kramer-jaws/ @jeffreykramerofficial @marylinartist Jeffrey made his first appearance on the TV series Barney Miller starring in the episode Snow Job as the “Stick Up Man”. Kramer, a Fox TV executive before becoming an independent producer based at CBS TV Studios, began his career as an actor, working on stage, in TV series on such shows as Happy Days and Laverne and Shirley. Jeffrey is a producer and or studio executive of Emmy Winning/Golden Globe Winning - Top TV shows: X-Files, The Practice, Ally McBeal, Chicago Hope & Living Color. His charity: Tourette Syndrome Association. *Thank you for listening & supporting the podcast :) https://www.buymeacoffee.com/sneakies https://www.paypal.com/paypalme/anonymouscontent *Royal Girl* Funds will go to sound and editing. Paypal (friends & family) petcarebuddies@gmail.com https://www.patreon.com/sneakies Instagram @marylinartist LinkedIn: Marylin Hebert Please Subscribe to our YouTube:) https://www.youtube.com/user/Fellinijr/videos Zombie Diaries: https://youtu.be/tBmgi3k6r9A Our books :) Young Adult wizard book series: "Margaret Merlin's Journal" by A. A. Banks at Amazon! :) https://www.instagram.com/margaretmerlinsjournal/ MMJ Book I The Battle of the Black Witch https://www.amazon.com/Margaret-Merlins-Journal-Battle-Black-ebook/dp/B01634G3CK MMJ Book II Unleashing the Dark One --- Support this podcast: https://anchor.fm/filmaddicts/support

Unstoppable tics, convulsions, and sore days, yup! I know what that's like.Today we are talking about non-epileptic seizures also known as psychogenic seizures or PNES. I have been dealing with my TS since I was a child but lately I have struggled with seizures that are becoming more intense and more frequent. We are also discussing the importance of advocating for mental health so that we can make mental health affordable for everyone and anyone. Episode mentions:Tourette Syndrome Association of America The Warrior Room (Online wellness training)Music by Ghostshaft

Welcome to a brand new episode of Shark's Pond: A South Park Podcast. Join Bill as he reviews the season eleven South Park episode "Le Petit Tourette". Topics discussed include the first time Bill was made aware of Tourette's Syndrome, the history of Dateline, Chris Hansen, the response from the Tourette Syndrome Association and much more.Theme song courtesy of Joseph McDade https://josephmcdade.com/Follow the show on Twitter https://twitter.com/sharkspond97Join the shows Facebook group https://www.facebook.com/groups/sharkspond/

Drs. Rebecca Hines and Lisa Dieker, UCF faculty, share their thoughts on helping teachers and families find resources and networks. This episode highlights just a few of the national and local networks to consider including the Council for Exceptional Children, UCP, Tourette Syndrome Association and Best Buddies to just name a few. We hope you enjoy thinking about how to expand your support network as a teacher or a parent. We look forward to receiving your questions @accesspratical

There's been an upsetting rise in abuse towards those with Tourette's Syndrome since COVID-19 disrupted our lives as tics that some suffer are being misdiagnosed as COVID-19 symptoms. Robyn Latimer is the President of the Tourette Syndrome Association of Australia and she explains to John what Tourette Syndrome includes and breaks the public image that Tourette's is just uncontrolled profanity.

Producer and former actor Jeffrey Kramer made his first acting appearance on the TV series Barney Miller, but achieved notoriety playing Deputy Jeff Hendricks in the Oscar-winning horror/thriller smash hit movie, JAWS, and then reprised the role in the hit sequel, JAWS 2. He’s appeared in the Joe Dante cult classic, HOLLYWOOD BOULEVARD, the horror film, HALLOWEEN II, and the ensemble, black comedy, mystery film, CLUE. He’s appeared in TV shows such as LAVERNE AND SHIRLEY, THE MARY TYLER MOORE HOUR, CHICO AND THE MAN, M*A*S*H, and HAPPY DAYS. As an Executive Producer he’s won three Emmy Awards, three Golden Globes, the Producer's Guild - Producer of the Year Award, two Peabody Awards and The Silver Gavel Award. In his charitable work he co-founded the Tourette Syndrome Association’s “Champion of Children Dinner”and serves on the National Board of the Tourette Syndrome Alliance. Say it forward with Jeffrey Kramer.

http://mothersonthefrontline.org/wp-content/uploads/2017/07/episode-3.mp3 In this episode, Emily talks about her journey raising a young son with Tourette's Syndrome. She talks about the importance of community building on many levels, including strengthening relationships within the family and marriage, her church, her son's school, and the larger community. By educating those in their lives about Tourette's Syndrome, her son can be himself and feel part of a supportive and understanding community. She also discusses the importance of intentional planning of self-care and ways to make it happen. Topics include: Tourette's Syndrome, Self-Care, Family, Community, Advocating for your child at school. Resources mentioned in this podcast: Tourette Association of America  - (Formerly known as the Tourette Syndrome Association) focuses on awareness, research, and support. https://tourette.org/ The book: The Fringe Hours by Jessica Turner Transcription Speaker: Welcome to the Just Ask Mom Podcast, where mothers share their experiences of raising children with mental illness. Just Ask Mom is a Mothers on the Frontline Production. Today we will speak to Emily, a mother of a son with Tourette's Syndrome, living in Iowa. Tammy: Well, I was wondering if you could just start by telling us a little about yourself? Emily: Sure, my name is Emily and I'm a wife and a mom of two kids. I have a daughter who's seven and I have a son who's nine, and my nine-year-old son has Tourette's syndrome. Tourette's syndrome is a neurological condition that causes a variety of motor and vocal tics. So, in my son's case he has a coughing tic, blinks his eyes, will have shoulder raises and that kind of thing. So, we have just had the diagnosis for a couple of years, so we're sort of new to all of this but he is a joy in our family and we're just really learning how to best care and best parent him. Tammy: Awesome. So, before we get started I'm just going to ask you to step back for a moment and tell us a little bit about you either before mothering or outside of mothering, a little bit about you. Emily: Yeah, I have a lot of different interests. My faith is a really important interest of mine, I just really enjoy being a part of a church and that's just a really important piece of who I am. I also really just love creating things so I love to sew, I love to bake, I love to make cards. They do have to have a finite ending to them. Tammy: (laughs) Emily: I'm not the scrap booker that can keep on going forever but I do love those short creative projects. I also love the Olympics and I'm a big Disney fan, it truly is my happy place. So, those are some of my passions and interests. Tammy: Wonderful, thank you for that. I want you to pretend that you're talking to other moms, what do you want them to know? Emily: I would say that the thing that I would want them to know is how community is so important when you're the parent of a child with Tourette's syndrome or any special need. That community is a place where you can get support and encouragement but it really just helps you be a super confident mom and to be the best mom that you can be to your child. So, I thought I'd share a few places that have helped me in building community. One of them is just within the family itself. I asked my son before I came here, “What's the one thing that I do as your mom that helps you as a person living with Tourette's Syndrome?” He said, “You just make it okay to have it.” A huge compliment from him, but just making sure that our family is a place that he feels safe and comfortable, that it's a place he knows he can let all of his tics out when he gets home from school, or he can talk to us about how his tics are making him feel. Building community within our family means spending a lot of time together and it's figuring out what that is. So, for us we love to play games together. We enjoy Disney together. (laughs). Traveling is a big bonding experience too.

https://mothersonthefrontline.org/wp-content/uploads/2017/07/episode-3.mp3 In this episode, Emily talks about her journey raising a young son with Tourette's Syndrome. She talks about the importance of community building on many levels, including strengthening relationships within the family and marriage, her church, her son's school, and the larger community. By educating those in their lives about Tourette's Syndrome, her son can be himself and feel part of a supportive and understanding community. She also discusses the importance of intentional planning of self-care and ways to make it happen. Topics include: Tourette's Syndrome, Self-Care, Family, Community, Advocating for your child at school. Resources mentioned in this podcast: Tourette Association of America  - (Formerly known as the Tourette Syndrome Association) focuses on awareness, research, and support. https://tourette.org/ The book: The Fringe Hours by Jessica Turner Transcription Speaker: Welcome to the Just Ask Mom Podcast, where mothers share their experiences of raising children with mental illness. Just Ask Mom is a Mothers on the Frontline Production. Today we will speak to Emily, a mother of a son with Tourette's Syndrome, living in Iowa. Tammy: Well, I was wondering if you could just start by telling us a little about yourself? Emily: Sure, my name is Emily and I'm a wife and a mom of two kids. I have a daughter who's seven and I have a son who's nine, and my nine-year-old son has Tourette's syndrome. Tourette's syndrome is a neurological condition that causes a variety of motor and vocal tics. So, in my son's case he has a coughing tic, blinks his eyes, will have shoulder raises and that kind of thing. So, we have just had the diagnosis for a couple of years, so we're sort of new to all of this but he is a joy in our family and we're just really learning how to best care and best parent him. Tammy: Awesome. So, before we get started I'm just going to ask you to step back for a moment and tell us a little bit about you either before mothering or outside of mothering, a little bit about you. Emily: Yeah, I have a lot of different interests. My faith is a really important interest of mine, I just really enjoy being a part of a church and that's just a really important piece of who I am. I also really just love creating things so I love to sew, I love to bake, I love to make cards. They do have to have a finite ending to them. Tammy: (laughs) Emily: I'm not the scrap booker that can keep on going forever but I do love those short creative projects. I also love the Olympics and I'm a big Disney fan, it truly is my happy place. So, those are some of my passions and interests. Tammy: Wonderful, thank you for that. I want you to pretend that you're talking to other moms, what do you want them to know? Emily: I would say that the thing that I would want them to know is how community is so important when you're the parent of a child with Tourette's syndrome or any special need. That community is a place where you can get support and encouragement but it really just helps you be a super confident mom and to be the best mom that you can be to your child. So, I thought I'd share a few places that have helped me in building community. One of them is just within the family itself. I asked my son before I came here, “What's the one thing that I do as your mom that helps you as a person living with Tourette's Syndrome?” He said, “You just make it okay to have it.” A huge compliment from him, but just making sure that our family is a place that he feels safe and comfortable, that it's a place he knows he can let all of his tics out when he gets home from school, or he can talk to us about how his tics are making him feel. Building community within our family means spending a lot of time together and it's figuring out what that is. So, for us we love to play games together. We enjoy Disney together. (laughs). Traveling is a big bonding experience too.

https://mothersonthefrontline.com/wp-content/uploads/2017/07/episode-3.mp3 In this episode, Emily talks about her journey raising a young son with Tourette's Syndrome. She talks about the importance of community building on many levels, including strengthening relationships within the family and marriage, her church, her son's school, and the larger community. By educating those in their lives about Tourette's Syndrome, her son can be himself and feel part of a supportive and understanding community. She also discusses the importance of intentional planning of self-care and ways to make it happen. Topics include: Tourette's Syndrome, Self-Care, Family, Community, Advocating for your child at school. Resources mentioned in this podcast: Tourette Association of America  - (Formerly known as the Tourette Syndrome Association) focuses on awareness, research, and support. https://tourette.org/ The book: The Fringe Hours by Jessica Turner Transcription Speaker: Welcome to the Just Ask Mom Podcast, where mothers share their experiences of raising children with mental illness. Just Ask Mom is a Mothers on the Frontline Production. Today we will speak to Emily, a mother of a son with Tourette’s Syndrome, living in Iowa. Tammy: Well, I was wondering if you could just start by telling us a little about yourself? Emily: Sure, my name is Emily and I'm a wife and a mom of two kids. I have a daughter who's seven and I have a son who's nine, and my nine-year-old son has Tourette's syndrome. Tourette's syndrome is a neurological condition that causes a variety of motor and vocal tics. So, in my son's case he has a coughing tic, blinks his eyes, will have shoulder raises and that kind of thing. So, we have just had the diagnosis for a couple of years, so we're sort of new to all of this but he is a joy in our family and we're just really learning how to best care and best parent him. Tammy: Awesome. So, before we get started I'm just going to ask you to step back for a moment and tell us a little bit about you either before mothering or outside of mothering, a little bit about you. Emily: Yeah, I have a lot of different interests. My faith is a really important interest of mine, I just really enjoy being a part of a church and that's just a really important piece of who I am. I also really just love creating things so I love to sew, I love to bake, I love to make cards. They do have to have a finite ending to them. Tammy: (laughs) Emily: I’m not the scrap booker that can keep on going forever but I do love those short creative projects. I also love the Olympics and I'm a big Disney fan, it truly is my happy place. So, those are some of my passions and interests. Tammy: Wonderful, thank you for that. I want you to pretend that you’re talking to other moms, what do you want them to know? Emily: I would say that the thing that I would want them to know is how community is so important when you're the parent of a child with Tourette’s syndrome or any special need. That community is a place where you can get support and encouragement but it really just helps you be a super confident mom and to be the best mom that you can be to your child. So, I thought I'd share a few places that have helped me in building community. One of them is just within the family itself. I asked my son before I came here, “What's the one thing that I do as your mom that helps you as a person living with Tourette's Syndrome?” He said, “You just make it okay to have it.” A huge compliment from him, but just making sure that our family is a place that he feels safe and comfortable, that it's a place he knows he can let all of his tics out when he gets home from school, or he can talk to us about how his tics are making him feel. Building community within our family means spending a lot of time together and it's figuring out what that is. So, for us we love to play games together. We enjoy Disney together. (laughs). Traveling is a big bonding experience too.

1) Influence of age at surgical menopause influences cognitive decline and Alzheimer's pathology in older women and 2) Topic of the month: Parkinson's and parkinsonism disorders. This podcast for the Neurology Journal begins and closes with Dr. Robert Gross, Editor-in-Chief, briefly discussing highlighted articles from the print issue of Neurology. In the second segment Dr. Jeff Burns interviews Drs. Riley Bove and Philip De Jager about their paper on the influence of age at surgical menopause influences cognitive decline and Alzheimer's pathology in older women. Dr. Adam Numis is reading our e-Pearl of the week about parechovirus and neurologic disease. In the next part of the podcast Dr. Binit Shah interviews Dr. Anthony Lang about non-neurodegenerative causes of parkinsonism - drug-induced; structural: NPH, stroke, tumor; psychogenic. The participants had nothing to disclose except Drs. Burns, Bove, De Jager, Numis and Lang.Dr. Jeff Burns serves on the editorial board for Journal of Alzheimer's Disease; receives royalties for the publications of Early diagnosis and treatment of mild cognitive impairment and Dementia: An atlas of investigation and diagnosis; is a consultant for PRA International and receives research support from the NIH, Alzheimer's Drug Discovery Foundation, Elan, Janssen Pharmaceuticals Inc., Wyeth, Pfizer Inc, Novartis Pharmaceuticals Ltd, Danone, Avid Radiopharmaceuticals, Merck Serono and for clinical trials.Dr. Bove receives research support from Partners Healthcare, National Multiple Sclerosis Society and the NIH.Dr. De Jager serves as an editorial board member of the Journal of Neuroimmunology; serves on the scientific advisory board for Teva Neuroscience, Genzyme/Sanofi; receives speakers' honoraria from Biogen Idec and Source Healthcare Analytics, LLC; receives research support from Biogen Idec, GlaxoSmithKline, Genzyme/Sanofi, Vertex Pharmaceuticals and the NIH.Dr. Numis serves on the editorial team for the Neurology® Resident and Fellow Section. Dr. Lang served as an advisor for Abbott, Abbvie, Allon Therapeutics, Avanir Pharmaceuticals, Biogen Idec, Boerhinger-Ingelheim, Ceregene, Medtronic, Inc, Merck Serono, Novartis, NeuroPhage Pharmaceuticals, Teva Pharmaceutical Industries Ltd, UCB.; received research support from Brain Canada, Canadian Institutes of Health Research, Edmond J Safra Philanthropic Foundation, Michael J. Fox Foundation, National Parkinson Foundation, Parkinson Society Canada, Tourette Syndrome Association, W. Garfield Weston Foundation; received publishing royalties from Saunders, Wiley-Blackwell, Johns Hopkins Press, Cambridge University Press; served as an expert witness in cases related to the welding industry.

Background: Gilles de la Tourette Syndrome is a neurodevelopmental disorder that is caused by the interaction of environment with a complex genetic background. The genetic etiology of the disorder remains, so far, elusive, although multiple promising leads have been recently reported. The recent implication of the histamine decarboxylase (HDC) gene, the key enzyme in histamine production, raises the intriguing hypothesis of a possible role of histaminergic dysfunction leading to TS onset. Methods: Following up on the finding of a nonsense mutation in a single family with TS, we investigated variation across the HDC gene for association with TS. As a result of a collaborative international effort, we studied a large sample of 520 nuclear families originating from seven European populations (Greek, Hungarian, Italian, Polish, German, Albanian, Spanish) as well as a sample collected in Canada. Results and Conclusions: Interrogating 12 tagging SNPs (tSNP) across the HDC region, we find strong over-transmission of alleles at two SNPs (rs854150 and rs1894236) in the complete sample, as well as a statistically significant associated haplotypes. Analysis of individual populations also reveals signals of association in the Canadian, German and Italian samples. Our results provide strong support for the histaminergic hypothesis in TS etiology and point to a possible role of histamine pathways in neuronal development.

  TSA of Texas strives to improve the quality of life for individuals with Tourette's syndrome and their families via education, support, advocacy and more. TSA of Texas is a 501(c)3 non-profit organization and an affiliate of the National TSA.   TSA of Texas is a 501(c)3 non-profit organization and an affiliate of the national Tourette Syndrome Association. TSA of Texas strives to improve the quality of life for individuals with Tourette's syndrome and their families via education, support, advocacy and more. TSA of Texas is a 501(c)(3) non-profit organization and an affiliate of tour Tourette's syndrome, or TS, is a neurological disorder characterized by motor and vocal tics. Symptoms begin in childhood and cause those affected to make movements and noises they cannot control. While not life-threatening, TS is nonetheless often painful, disruptive and isolating. Many children with TS also have associated conditions such as Attention Deficit Hyperactivity Disorder, Obsessive Compulsive Disorder, and/or learning disabilities. While it is believed to be genetic, the exact cause of the symptoms is still unknown. The Tourette Syndrome Association of Texas, one of the largest chapters in the country, is a 501 ( c )3 non-profit organization. We raise funds to directly assist Texas families and children in crisis, 24 hours a day, 365 days a year.  

1) Sydenham chorea and 2) Topic of the month: Historical interviews. This podcast for the Neurology Journal begins and closes with Dr. Robert Gross, Editor-in-Chief, briefly discussing highlighted articles from the print issue of Neurology. In the second segment Dr. Jeff Waugh interviews Dr. Fabienne Brilot-Turville about her paper on antibody binding to neuronal surface in Sydenham chorea. In the next segment, Dr. Stacey Clardy is reading our e-Pearl of the week about fragile X-associated tremor ataxia syndrome. In the next part of the podcast Dr. Farrah Mateen completes our historical interviews for the month by interviewing Dr. Jerome Posner. In concluding, there is a brief statement where to find other up-to date patient information and current Patient Page. The participants had nothing to disclose except Drs. Brilot-Turville, Clardy and Mateen.Dr. Brilot-Turville has received research support from the Tourette Syndrome Association, USA, the Brain Foundation Australia, and the Trish Multiple Sclerosis Foundation Australia. Dr. Clardy serves on the editorial team for the Neurology® Resident and Fellow Section. Dr. Mateen served on the editorial team for the Neurology® Resident and Fellow Section and is supported by the 2010 Practice Research Grant from the American Academy of Neurology.

1) Motor cortex inhibition and 2) Topic of the month: Neurotoxins. This podcast for the Neurology Journal begins and closes with Dr. Robert Gross, Editor-in-Chief, briefly discussing highlighted articles from the print issue of Neurology. In the second segment Dr. John Mytinger interviews Dr. Don Gilbert about his paper on motor cortex inhibition. In the next segment, Dr. Stacey Clardy is reading our e-Pearl of the week about ictal asystole. In the next part of the podcast Dr. Beau Bruce interviews Dr. Jonathan Rutchik about neurolgic effects of organic solvents for our Lesson of the Week. Next week, we will discuss ciguatera poisoning. The participants had nothing to disclose except Drs. Gilbert, Clardy and Bruce.Dr. Gilbert has received honoraria from the Tourette Syndrome Association/ Centers for Disease Control, the Movement Disorder Society, the American Academy of Neurology, and the American Academy of Pediatrics; serves on the medical advisory board for the Tourette Syndrome Association; writes board review questions for PREP SA (American Academy of Pediatrics); has received research support from the NIH [NIMH R01 MH078160, NIMH R01 MH08185, and NINDS NS056276], and from Cincinnati Children's Hospital Research Foundation, the University of Cincinnati, and the Tourette Syndrome Association.Dr. Clardy serves on the editorial team for the Neurology® Resident and Fellow Section. Dr. Bruce has received grant funding from the AAN/AANF Practice Research Fellowship and is funded by NIH grants UL1-RR025008 and KL2-RR025009.

This episode is relevant to consumers and professionals. In this episode, R. Trent Codd, III, Ed.S., LPC, LCAS interviews Doug Woods, PhD about the behavioral treatment of Tourette Syndrome. In this episode they discuss: What Tourette Syndrome is  The behavioral approach to treating Tourette Syndrome along with the research base supporting this approach  The research on other psychosocial treatments for this disorder  Myths surrounding the behavioral treatment of Tourette Syndrome with an emphasis on what the research says about the myths discussed  DOUG WOODS, PhD BIOGRAPHY Douglas W. Woods, PhD, received his doctorate in clinical psychology from Western Michigan University in 1999. He is a recognized expert in the assessment and treatment of tic disorders and trichotillomania and is currently associate professor and director of clinical training in the Department of Psychology at the University of Wisconsin, Milwaukee. Woods has authored or coauthored more than ninety papers and chapters and has edited two book describing behavioral interventions for tic disorders, trichotillomania, and other repetitive behavior problems. He has presented his work nationally and internationally with over 100 conference presentations and numerous invited talks. Woods is a founding member of the Tourette Syndrome Association’s (TSA) Behavioral Sciences Consortium, is a member of TSA’s Medical Advisory Board, and serves on the Scientific Advisory Board of the Trichotillomania Learning Center. He has been funded by the TSA Grants program, Trichotillomania Learning Center Grants program, and is currently funded by the NIH as part of two separate multisite research projects investigating the efficacy of behavior therapy for children and adults with Tourette Syndrome.

From the 2006/2007 Distinguished Lecturer Series. Lawrence Scahill, MSN, PhD., is professor of Nursing and Child Psychiatry at Yale. For the past 9 years, he has served as the Director of the Research Unit on Pediatric Psychopharmacology (RUPP) at Yale, one of three centers in the RUPP Autism Network. The aim of this mulitsite network is to evaluate psychopharmacological and behavioral interventions in children with adolescents with autism and related developmental disorders. In addition to his work in autism, Dr. Scahill is also involved in psychopharmacological and behavioral interventions for children and adults with Tourette syndrome. He serves on the Medical Advisory Board of the Tourette Syndrome Association and is a principal investigator on two multisite studies evaluating the efficacy of a behavioral intervention for tics in children and adults with Tourette syndrome. Dr. Scahill is an active clinician specializing in the care of children with Tourette syndrome and children with autism. The author of over 130 journal articles and numerous book chapters, Dr. Scahill is also a teacher in the graduate School of Nursing at Yale.

From the 2006/2007 Distinguished Lecturer Series. Lawrence Scahill, MSN, PhD., is professor of Nursing and Child Psychiatry at Yale. For the past 9 years, he has served as the Director of the Research Unit on Pediatric Psychopharmacology (RUPP) at Yale, one of three centers in the RUPP Autism Network. The aim of this mulitsite network is to evaluate psychopharmacological and behavioral interventions in children with adolescents with autism and related developmental disorders. In addition to his work in autism, Dr. Scahill is also involved in psychopharmacological and behavioral interventions for children and adults with Tourette syndrome. He serves on the Medical Advisory Board of the Tourette Syndrome Association and is a principal investigator on two multisite studies evaluating the efficacy of a behavioral intervention for tics in children and adults with Tourette syndrome. Dr. Scahill is an active clinician specializing in the care of children with Tourette syndrome and children with autism. The author of over 130 journal articles and numerous book chapters, Dr. Scahill is also a teacher in the graduate School of Nursing at Yale.