Podcasts about lupus foundation

In this episode of the Lupus Foundation of America's The Expert Series podcast, we focus on the unique challenges faced by men with lupus, a group that often experiences delayed diagnosis and is impacted by widespread misconceptions. Dr. Lisa Sammaritano shares how lupus symptoms can differ between men and women, and how the disease can affect mental health, identity, and quality of life. We also discuss reproductive health concerns and the evolving landscape of lupus treatment. For men who are newly diagnosed, Dr. Sammaritano offers practical guidance and emphasizes the importance of self-advocacy, education, and seeking support throughout the lupus journey.Sign up to receive emails from the Lupus Foundation of America (LFA) when new episodes are published.Episode Takeaways:Lupus in men is often overlooked, leading to delayed diagnosis and misunderstandings about the disease.Symptoms and disease progression can differ in men, making personalized care especially important.Self-advocacy and education are key to managing lupus and navigating the healthcare system.Mental health and reproductive health concerns are important but often under-addressed aspects of living with lupus.Support from peers, family, and friends plays a vital role in coping and improving quality of life.Related Resources:Ask a Lupus Health Educator (LFA) Find Support Near You (LFA) National Resource Center on Lupus (LFA) American College of Rheumatology (ACR) Systemic lupus erythematosus and male reproductive health: A systematic review and meta-analysis Impact of sex disparities on the clinical manifestations in patients with systemic lupus erythematosus

In this episode of No Hacks, host Sani is joined by technical SEO strategist Anne Berlin to explore one of the most disturbing and fascinating topics on the web today: the Dead Internet Theory. Is most of what we see online actually created by bots, for bots? What happens when the web becomes a wasteland of AI-generated slop and abandoned digital ruins? Anne draws on her extensive experience analyzing crawl logs, server stats, and digital infrastructure to reveal how bot traffic is outpacing real users, and what that means for the future of human-centric content.If you've ever wondered why the web feels “off” these days, this one's for you.

In this episode of the Lupus Foundation of America's The Expert Series podcast, we explore the intersection of menopause and lupus, highlighting the unique challenges faced by women with lupus during this significant life transition. Dr. Mehret Birru Talabi explains the stages of menopause, its effects on lupus symptoms, and the importance of individualized care. We also cover hormone replacement therapy, lifestyle factors, and the necessity of self-advocacy in managing health during menopause. And although we know it isn't easy, we also talk about how important it is for women to prioritize their health and seek support from their health care team.Sign up to receive emails from the Lupus Foundation of America (LFA) when new episodes are published.Episode Takeaways:Menopause is a significant transition in women's lives. Because most people with lupus are women, most people with lupus will experience this transition.Estrogen plays an important role in autoimmune diseases like lupus and fluctuating estrogen levels during menopause can cause both increases and decreases in disease activity.Hormone replacement therapy can be an option for women with lupus who are having difficulty managing the symptoms of menopause. There is no one size fits all approach to lupus or menopause and women should discuss all of their options with their health care team.Lifestyle factors such as diet and exercise are vital in managing menopause symptoms and lupus. Even small changes can lead to positive results.Quality of life matters and women with lupus don't have to face difficult symptoms of menopause without help. Learning and practicing self-advocacy is essential for women navigating menopause and lupus.Related Resources:Grown Women Talk: Your Guide to Getting and Staying Healthy by Sharon MaloneAsk a Lupus Health Educator (LFA)Find Support Near You (LFA)National Resource Center on Lupus (LFA)The Expert Series: Lupus and Antiphospholipid Syndrome (LFA)The Expert Series: Planning for Pregnancy With Lupus (LFA)

Join Dr. Anna Wolska from the Lupus Foundation of America as she talks with Dr. Jim Oates about his recently published study in Lupus Science & Medicine on validating claims-based algorithms in Medicare data to identify SLE and lupus nephritis. Dr. Oates explains how ICD-10 coding and geospatial analysis (via the Lupus Index) can help pinpoint disparities, guide clinical trial recruitment, and reveal how location affects patient outcomes. The conversation covers the varying sensitivity and specificity of different coding algorithms, potential racial differences, and how overlaying socioeconomic and environmental data can shed light on lupus prevalence and improve healthcare resource allocation.   Read the article published in LSM - https://doi.org/10.1136/lupus-2024-001329

Early reduction in proteinuria is a key predictor of improved long-term kidney health in lupus nephritis (LN). In this episode, Dr. Anna Wolska from the Lupus Foundation of America speaks with Drs. Maria Dall'Era and Anca Askanase about a new propensity analysis comparing voclosporin-based triple immunosuppressive therapy to traditional high-dose glucocorticoid regimens. They discuss findings from the AURA-LV and AURORA 1 studies, highlighting the safety benefits and earlier proteinuria reduction seen with voclosporin. Tune in to explore how these insights may shape LN treatment guidelines and improve patient outcomes.   Read the paper published in LSM: https://doi.org/10.1136/lupus-2024-001319

This episode explores the complex relationship between lupus and fibromyalgia, focusing on definitions, symptoms, overlapping conditions, treatment approaches, mental health implications, cultural influences, lifestyle factors, diagnostic tools, and the importance of patient advocacy. Experts Drs. Peter Izmirly and Kelly Corbitt provide insights into the challenges faced by patients with both conditions and discuss the need for better understanding and treatment options. Sign up to receive emails from the Lupus Foundation of America (LFA) when new episodes are published. Related Resources: Strategies for Managing Pain (LFA) Staying Active When You Have Lupus (LFA) Ask a Lupus Health Educator (LFA) FMAware.org (National Fibromyalgia Association resource site mentioned by Dr. Corbitt)

Drs. Ashira Blazer and Denise Kimbrough discuss the recent removal of the African American/Black race coefficient from the Kidney Donor Profile Index (KDPI) by the Organ Procurement and Transplantation Network (OPTN). Learn about the implications for lupus patients with kidney disease and the potential impacts on health equity. Episode Takeaways: Lupus-related kidney disease (lupus nephritis) disproportionately affects African American/Black, Hispanic, Indigenous, South Asian and Latino/a populations, who face longer transplant wait times due to systemic inequities and social determinants of health. Biases in medical algorithms, such as race-based estimated glomerular filtration rate (eGFR) calculations, can harm patient outcomes. Recent removal of race from eGFR calculations could potentially improve access to transplants for communities where previous opportunities for transplantation were significantly lower. Enhancing education and awareness related to kidney health is essential for addressing these health disparities and improving outcomes. Sign up to receive emails from the Lupus Foundation of America (LFA) when new episodes are published. Related Resources: New Policy Will Remove Race, Improve Equity in Transplantation (National Kidney Foundation) Kidney transplant for lupus: Your essential questions answered (LFA) Lupus Nephritis Information Center (LFA) Lupus and the Kidneys (LFA) What is lupus nephritis? (LFA)

Season FOUR Episode FOUR of the Your Story Our Fight® podcast welcomes Mercedes Yvette. Mercedes Yvette Shorte gained fame as a contestant on America's Next Top Model, leading to a successful 20-year career in modeling and acting. She later became a spokesperson for the Lupus Foundation of America, advocating for awareness and funding on a national level.Now, Mercedes channels her passion into the luxury design world through Luxe Design Living, providing tailored furnishings and décor solutions to the design community and beyond. Representing high-end manufacturers, she brings exquisite products to life in both residential and commercial spaces, blending artistry with functionality.

Lupus is a chronic autoimmune disease that can be life-altering for those living with it. Today, we'll discuss what lupus is, how it impacts daily life, and the challenges many face in getting proper care. We'll also explore the hope that ongoing research brings and talk about the 2024 Lupus Loop event with Shawn Triggs, Regional Director for the Lupus Foundation of America Pennsylvania Delaware Valley chapter, and Lynnai Jay, an Ambassador for the Foundation in our region.Website: www.walktoendlupus.org/philadelphiaInstagram: @lfa_pdvregionFacebook: Lupus Foundation of America PDV RegionLinkedIn: Lupus Foundation of America PDV Region  Today, we're also shining a light on Help Hope Live, a national nonprofit that supports individuals facing unmet medical and related expenses due to transplants, catastrophic injuries, or illness. Help Hope Live empowers families and communities to raise funds, providing a vital network of hope, financial relief, and resources for those navigating medical crises. In this interview, we'll explore the organization's mission and impact with Executive Director Kelly Green. Plus, we'll share details about their upcoming Live It Up! 2024 Gala, taking place on Thursday, October 24th.Learn more at helphopelive.org/event/live-it-up-2024.  First, food, community, and fun await at U.S. Night Market on Saturday, October 26th, from 6-10 PM on South Street (21st to 23rd). This multicultural festival celebrates the rich diversity of Philadelphia through food, music, and more. Oshunbumi Fernandez-West, CEO of ODUNDE, the largest African American festival in the U.S., knows how to create impactful community events.Learn more at usnightmarket.comInstagram: @usnightmarket

Robbin Maddox, a breast cancer survivor, maintained a positive attitude throughout her battle and was inspired to create The She Shines Conference. We'll dive into this empowering event, which takes place on November 9th, featuring inspiring speakers, workshops, and women-owned businesses.Learn more at sheshinesconference.com.  Lupus is a chronic autoimmune disease that profoundly impacts those living with it, yet it remains largely misunderstood. We discuss what lupus is, how it affects daily life, and the challenges many face in accessing proper care. Additionally, we'll explore the hope that ongoing research brings and talk about the upcoming 2024 Lupus Loop event with Shawn Triggs, Regional Director for the Lupus Foundation of America Pennsylvania Delaware Valley chapter, and Lynnai Jay, an Ambassador for the Foundation in the region.Website: www.walktoendlupus.org/philadelphiaInstagram: @lfa_pdvregionFacebook: Lupus Foundation of America PDV RegionLinkedIn: Lupus Foundation of America PDV Region First, get ready for food, community, and fun at U.S. Night Market on Saturday, October 26th, from 6-10 PM on South Street (21st to 23rd). This multicultural festival showcases the rich diversity of Philadelphia through food, music, and entertainment. It's the Night Market that celebrates all of us! And someone who knows all about building great community events is Oshunbumi Fernandez-West, CEO of ODUNDE, the largest African American festival in the U.S.Learn more at usnightmarket.comInstagram: @usnightmarket

Amira Young - Kingsawan is a Community Organizer with Worker Center of Racial Justice, which is a grassroots organization fighting for Black Liberation and a fair and inclusive society that benefits all people through direct action organizing, policy advocacy, leadership development and voter engagement. She is also an advocate as a member of VOICES Member: Domestic Violence Awareness of the Sojourner Center and a Lupus Foundation of America advocate. We chat about her journey as a community organizer, what is restorative justice and how we can learn from it, why voting matters and more! Amira & WC4RJ: https://www.center4racialjustice.org/Blacspiration: https://linktr.ee/blacspirationCallMeAzia: https://callmeazia.com/Ask Us Anything! We will discuss it on the next show!Support the Show.

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Temple guard Quante Berry will be at the Lupus Links Golf Challenge Wednesday at Lafayette Hill's Green Valley Country Club to help raise awareness and money for lupus research. It's a cause that's quite important to the redshirt-sophomore point guard, as his sister and mother have both been diagnosed with the autoimmune disease.   Participants in Wednesday's outing can meet Berry and face off against him in a Beat the Pro game of arcade pop-a-shot.   As a guest on this week's episode of The Scoop, Berry talked about his work with the Lupus Foundation of America, his freshman season at Temple, and why he thinks the Owls are poised to play some meaningful basketball next March.   If you're interested in playing at the July 10 Lupus Links Golf Challenge, you can register here. 

Quante Berry of the men's basketball team joins the show. Quante talks a little bit about his first year on the team and the ups and downs. Quante also talks about his charitable work with the Lupus Foundation and how he'll be at the golf outing July 10th.

Join Dr. Anna Wolska from the Lupus Foundation of America and Dr. Laurent Arnaud, Professor of Rheumatology at the Department of Rheumatology, University Hospitals of Strasbourg as they discuss systemic lupus erythematosus (SLE) clinical trials. In this episode, Dr. Arnaud highlights the complexities of drug approval processes in lupus, the pivotal role of large-scale phase three randomized trials and critical outcome measures in these trials, from primary endpoints assessing treatment efficacy to secondary and exploratory measures capturing broader impacts on patient health and quality of life.   Read the article: https://lupus.bmj.com/content/11/1/e001114

Join Dr. Anna Wolska from the Lupus Foundation of America as she delves into a groundbreaking discussion with Dr. Stephen Balevic focused on hydroxychloroquine blood levels and understanding medication adherence in lupus patients. In this episode, Dr. Balevic, a rheumatologist and clinical pharmacologist from Duke University, explains the nuances of interpreting hydroxychloroquine levels, the challenges of ensuring patient adherence, and the implications for clinical practice. Discover the latest insights on optimizing lupus treatment and learn about an innovative algorithm to improve adherence monitoring.   Read the related paper: https://doi.org/10.1136/lupus-2023-001090

Welcome back to the Dr. Kinney Show! In today's episode, I'm excited to be joined by Amanda Chay, who speaks to me about her extensive journey with lupus, from a complicated diagnosis spanning two decades to managing the chronic condition. Amanda discusses her initial misdiagnoses, the complexity of lupus symptoms, and the eventual diagnosis that linked her experiences to lupus, a condition affecting 1.5 million Americans, predominantly women.  Amanda Chay is an author, entrepreneur, and lifelong health nut who has helped countless businesses and individuals put their health first. With a master's degree in counseling and as the owner of a stress reduction and mindfulness training company, Amanda brings a wealth of expertise to her work.  She is a member of the University of North Carolina Lupus Stakeholder Advisory Board and is a Lupus Foundation of American external affairs committee member for NC. When she's not planning her next travel adventure with her daughters and husband, she's drinking jasmine tea, teaching yoga, and giving book suggestions to anyone willing to listen. In Today's Episode We Discuss ·        Amanda's Journey: Diagnosis and Challenges·        Understanding Lupus: Symptoms, Diagnosis, and Management·        The Importance of Advocacy and Self-Advocacy in Health·        Personal and Family Impacts of Lupus·        The Girlfriend's Guide to Lupus: Insights and Advice·        Breath Work, Mindfulness, and the Importance of BasicsI encourage everyone to not only support loved ones with chronic illnesses but also to take active steps in our own health advocacy. Let's take inspiration from Amanda's story and remember, that strength often comes from struggle. Connect with Amanda Website Buy Her Book On Amazon Instagram Where We Can Connect Listen on Your Favorite Podcast PlatformFollow the PodcastWatch & Subscribe on YouTubeFollow Me on InstagramConnect With Me on Facebook Follow & Review On Apple PodcastsAre you following the podcast? If you're not, I want to encourage you to follow today so you don't miss any future episodes! I have so many amazing guests and topics lined up, I would hate for you to miss a single one!  Click here to follow on Apple Podcasts.  Could I ask a big favor? If you are loving the show, I would LOVE it if you would leave me a review on Apple Podcasts. I read each and every one!   Wondering how to leave a review? Click here to review, then select “Ratings and Reviews” and “Write a Review”.  So easy and so appreciated! 

Have you ever found a friend in the most unexpected of places? On our latest episode, we're joined by Geri, a beacon of hope from the chronic illness community on Instagram, who opens up about her life with Lupus and Sjogren's syndrome. Her story is a testament to the strength and solace that virtual friendships can provide, especially when real-life connections to those who truly understand are few and far between. We navigate the all-too-common experience of medical gaslighting and the sheer determination needed to pursue a diagnosis, offering a powerful reminder of the resilience within us all.Imagine conquering not just lupus but also staring down non-Hodgkin's lymphoma without the need for chemotherapy. That's the reality for one incredible New Yorker who shares her experience on our show. She delves into the perks of her healthcare network in the bustling city. She recounts how her robust support system became her lifeline through both her health triumphs and the turbulence of travel post-diagnosis. It's a raw look at the unpredictable nature of chronic illnesses and the immeasurable value of having a solid circle of medical and personal care.Our closing chapter is packed with practicality and wisdom from our 'Spoonie Toolkit' straight to your ears. We discuss the small yet significant things that make a big difference in managing day-to-day life with a chronic illness, as well as the bigger picture of finding joy and setting goals amidst the challenges. We also shine a light on the support networks that buoy us, like the constant care from loved ones such as Lawrence and organizations like the Lupus Foundation of America. Join us for a heartfelt conversation with a fellow advocate and writer who's on a mission to uplift the lupus community with every word she types and every story she shares.The one app with all the wellness resources is designed to help those with autoimmune diseases thrive and lead a more meaningful and purposeful life. From weekly recipes, movement, and meditation to forums and a marketplace, Our Serendipity has been developed as one cohesive ecosystem to support those fighting invisible illnesses. Our Serendipity App Kaleidoscope Rare Disease Stories, a collection of first-person stories from people around the world living with a variety of rare diseases. *Net proceeds from sales of this book will be donated to the National Organization for Rare Disorders Amazon.com: Kaleidoscope: Rare Disease Stories (Kaleidoscope Stories) eBook : Wong, Kerry L.: Kindle Store Thoughtful premium products for all the immune challenged.We make living with chronic illnesses easier! BeWell - Thoughtful products for those with an autoimmune disease. (wearebewell.com)Support the showWebsite: https://myspooniesisters.com/Support:https://www.etsy.com/shop/MySpoonieSisters

In the House today we have special guest Tracy Fleury who just won the Scotties as third for Rachel Homan (3:05). In What's Happening Around the Curling World? The Scotties are over for another year but we take one last look back at it all. We take a look at the World Junior Championship (U-21) and make a correction to something we said. And get ready, the Brier starts Friday so the guys make their picks for the final six teams. Kevin has some big events happening in the U.S. over the next while that are being done in conjunction with the Lupus Foundation (27:01). On Hot Rocks Topics, we look at a couple of emails (44:03) and on What are You Hearing? The semifinal at the Scotties was over before it started when Jennifer Jones scored five in the first end against Kate Cameron. Immediately social media lit up with people wondering why Cameron had to continue on and play nine full ends: why could they not quit sooner?Inside Curling is hosted by Kevin Martin, Warren Hansen and Jim Jerome. Recorded, Edited and Mixed by Mike Rogerson.The views and opinions expressed in this podcast are those of the hosts and guests and do not necessarily reflect the position of Rogers Sports & Media or any affiliates. 

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In This Episode: In the vast realm of health challenges, one stands out with its distinct female majority: lupus, a condition where a staggering 90% of those affected are women. Yet, beyond the gender disparity lies a financial storm, with each patient shouldering an annual loss of $50,000 due to healthcare expenses and diminished productivity. But perhaps the most disturbing revelation? Over half of Americans remain in the shadows, either completely unaware or possessing only a vague understanding of lupus. It's time to bring this to light. Lupus Dilemma of Silicon Valley: Female Majority: Ninety percent (90%) of people living with lupus are women Financial Struggles: $50,000 is lost annually by each lupus patient in healthcare costs and lost productivity Lack of awareness: 63% of Americans surveyed have never heard of lupus or know little or nothing about this disease About Thomas Bakewell: Thomas Bakewell is the Executive Director of the Lupus Foundation of Northern California, where he leverages his over 15 years of experience in the nonprofit sector to drive positive change and organizational success. Tom has a history of enhancing program offerings, increasing funding, and improving operational efficiencies in various nonprofits, significantly expanding their impact and reach. His previous roles include leadership and board positions at the Nonprofits Insurance Alliance, the Sovereign Order of St John, Cake4Kids, and the de Saisset Museum at Santa Clara University. Dedicated to professional growth and advocacy for vulnerable societal groups, Tom collaborates effectively with staff, volunteers, board members, and community partners at the Lupus Foundation. Outside of his professional life, he enjoys family time, gardening, and golf. Show Notes: What is Lupus?  Lupus is a complex autoimmune disease predominantly affecting women, especially women of color. It involves multiple symptoms and organ damage, including the heart, lungs, brain, and skin.  What is Tom Bakewell's motivation behind leading the Lupus Foundation?  The executive director shares his connection to lupus with his mother and daughter affected by the disease, fueling his dedication to the organization's mission.  What are some impactful patient stories at the Lupus Foundation? Highlighting stories of individuals positively impacted by the organization's support and services, including a woman who found support after a lupus diagnosis and a mother in Minnesota seeking empathy for her daughter's condition. How does the Lupus Foundation address the challenges faced by women?  The organization focuses on women, especially women of color, through diverse representation on the board and women-centric support groups.  What are the varied support programs offered by the Lupus Foundation? Introduction to programs like the Lupus Buddy Program, health conferences, virtual doctor visits, and support groups aimed at providing comprehensive help to lupus patients.  What is ‘The Lupus Buddy Program'?  The Lupus Buddy Program connects newly diagnosed and experienced lupus patients for support and mentorship.  What are the exciting developments in Lupus Treatment?  Discuss new clinical treatments and technologies targeting lupus and efforts to bridge the gap between patients and pharmaceutical trials.  What are the challenges with Insurance for Lupus Patients?  Addressing the difficulties lupus patients face with insurance companies and the organization's role in facilitating continuous communication for better care. Links Mentioned: Mayo Clinic OutRun Lupus 5K Run/Walk Stanford University School of Medicine Connect with 'Akhila Health': If you or someone you love is navigating the challenges of lupus, contact ‘Lupus Foundation': Connect on Facebook Connect on Instagram Connect on LinkedIn Connect on YouTube Email: outreach@lfnc.or Call/Text: (408) 954-8600 Website: Lupus Foundation of Northern California Donate: Lupus Foundation of Northern California

Amanda Chay is an author, entrepreneur, and lifelong health nut who has helped countless businesses and individuals put their health first. With a master's degree in counseling and as the owner of a stress reduction and mindfulness training company, Amanda brings a wealth of expertise to her work. She is a member of the University of North Carolina Lupus Stakeholder Advisory Board and is a Lupus Foundation of American external affairs committee member for NC. When she's not planning her next travel adventure with her daughters and husband, she's drinking jasmine tea, teaching yoga, and giving book suggestions to anyone willing to listen.  Inspiring discussion! Amazing story! So much to think about! Before you go... Could you do me a favor? Please go to my website at https://www.stevenmiletto.com/reviews/ or open the podcast app that you are listening to me on, and would you rate and review the podcast? That would be so cool. Thanks! If you are listening on Apple Podcasts on your phone, go to the logo - click so that you are on the main page with a listing of the episodes for my podcast and scroll to the bottom. There you will see a place to rate and review. Could you review me? That would be so cool. Thank you! Hey, I've got another favor...could you share the podcast with one of your friends, colleagues, and family members? Hmmm? What do you think? Thank you! Thanks for sharing! Thanks for listening!   Our focus today will be Amanda's book - The Girlfriend's Guide to Lupus: How to Control Your Sh*tty Diagnosis Connect & Learn More: https://amandachay.com/the-girlfriends-guide-to-lupus/ https://amandachay.com/ amandachay@gmail.com https://www.facebook.com/amanda.chay/ https://www.youtube.com/@amandachay7466 https://www.instagram.com/amandaechay Length - 46:14

Cheryl and Brianna discuss the challenges and the benefits of sharing your chronic illness story publicly on social media, including how they deal with both positive and negative feedback from a growing audience. They also discuss the positive impact of finding support and inspiration online. Brianna shares her involvement with the Arthritis Foundation and the Lupus Foundation, highlighting the importance of giving back and helping others in the community. The role of support groups, camps, and patient advocacy organizations in providing a sense of community and connection for individuals living with chronic diseases is highlighted.  Cheryl and Brianna also discuss the value of adapting and accepting one's condition to live a fulfilling life. Finally, they emphasize the importance of acceptance and adaptation in thriving with rheumatic diseases.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! For full episode details including a video and transcriptGo to the episode page  on the Arthritis Life website for full details! 

Melaca Cannella is a Health and Wellness Board Certified Nurse Coach who focuses her efforts on educating people about their medical conditions and working with them on helping to achieve their goals. She established the Sjogren's and Lupus Foundation of Hawaii in 2015 and has passionately served her community to help raise awareness and provide education and support. You can find her at alwaysbhealthynhappy@gmail.com.

Host Bryan Ford is joined by actor and musician Tristan Mack Wilds. The multi-faceted entertainer became widely popular from his breakout role as Micheal Lee on HBO's The Wire and starring as Dixon Wilson on the hit remake 90210. In 2014, Wilds released his critically acclaimed debut album, New York: A Love Story, executively produced by iconic producer Salaam Remi. The album went on to receive a GRAMMY nomination for Best Urban Contemporary Album. He currently stars as "Alonzo Powers" on AppleTV+'s Swagger.  Tristan joins Bryan for the “dish that raised him,” his mom's  Poor Man's chili.    This episode was recorded prior to the SAG-AFTRA strike.   Watch Bryan make his version and Subscribe: Youtube Recipe from today's episode can be found at Shondaland.com Join The Flaky Biscuit Community: Discord  Tristan IG: @mackwilds Bryan Ford IG: @artisanbryan Don't forget to check out Lupus Foundation of America at lupus.org.See omnystudio.com/listener for privacy information.

Dr. Anna Wolska from the Lupus Foundation of America interviews Drs. Ana Malvar and Brad Rovin. They discuss using repeat tissue biopsies to understand progression of lupus nephritis over time. They offer conjecture that both immunosuppression as well as mitigation of tissue fibrosis, resulting from inflammatory resolution, are needed in order to preserve kidney function and prevent progression to kidney failure.   Read the related article - http://dx.doi.org/10.1136/lupus-2023-000932

In this episode of The Expert Series, Dr. Tamar Rubinstein, a pediatric rheumatologist at the Children's Hospital at Montefiore in New York, talks with us about how lupus affects teenagers, how they can cope with lupus, and how to communicate with health care providers as teens get older.  Her research focuses on improving mental health and disease outcomes in youth with lupus and has been funded by the Lupus Foundation of America, the Rheumatology Research Foundation, the Childhood Arthritis and Rheumatology Research Alliance (CARRA)/ Arthritis Foundation, and the National Institute of Arthritis and Musculoskeletal and Skin Diseases at the NIH. Resources: Find out more about lupus and teens School survival guide for teens with lupus Helping teens learn to cope with lupus SELF app, for people 18+ in the U.S. Mentioned resources: Take a pain check, a chronic disease podcast meant to support youth with rheumatic diseases

This week our guest is Dr. Joyce Chang, MD, MSCE, a recipient of the Lupus Foundation of America's “Mary Betty Stevens Young Investigator Award”, who shares her latest study, its methods, conclusions and career journey with us! Dr. Chang's latest study “Improving Outcomes of Pediatric Lupus Care Delivery With Provider Goal-Setting Activities and Multidisciplinary Care Models“ used the pediatric Lupus Care Index (pLCI) and population management strategies for improving outcomes in childhood SLE. Later, we spent some time with Dr. Chang and asked what she sought out in her first faculty appointment and how she ensured she would hit the ground running.

The Connecticut Technology Council's Women of Innovation event is the state's first women in tech awards, which now includes over 800 women as winners and finalists. So we'll touch base with CTC's new Executive Director to get the latest on how the CTC can help if you are in a tech or STEM field - and how you can help support Connecticut's Women of Innovation. Then, we'll welcome back Cindi Bigelow to talk about this year's Bigelow Tea Community Challenge and meet representatives from one of the nonprofits this 35-plus year tradition helps fund - Bridge House, a supportive and empowering community for adults with persistent mental illness. And we'll wrap with two spokespeople from Norwalk's Chapter of the Lupus Foundation of America, promoting its research and services to improve life now for people living with lupus, and touting  the upcoming fund and awareness-raising Walk to End LupusNow, coming to Norwalk in October.

Welcome to Living Well with MS, where we are pleased to welcome Professor Richard Burt as our guest! Professor Burt is a leading expert in hematopoietic stem cell transplantation (HSCT) for autoimmune diseases including MS and has been awarded a number of prestigious accolades. Watch this episode on YouTube here. Keep reading for the key episode takeaways and Professor Burt's bio. Questions and Timestamps 02:35 Could you introduce yourself and tell us about your work with patients with autoimmune conditions and MS? 12:03 What do you think about the idea of flipping the model and offering the most aggressive treatment options to patients first? 16:27 What are the risks of HSCT? 21:18 Can you tell us about the costs associated with stem cell transplantation? 24:13 What type of patients respond best to HSCT? 31:16 Do you see a future where doctors are trained in multiple fields and understand the whole picture of autoimmunity? 38:10 If someone's interested in exploring HSCT, what should they look for in a clinic or physician? 41:47 HSCT has a high upfront cost but how does that compare to being on an MS drug for years or perhaps a lifetime? 53:50 The Dalai Lama wrote the introduction to your book 'Everyday Miracles'. How did that come about? Selected Key Takeaways Randomised controlled trial results for HSCT have been very positive 05:12 “In a randomised trial, [HSCT] was just hands down much better than any [other] drug. All the drugs you use for MS are based on approval for slowing disease activity. That is slowing the number of relapses or slowing the rate of progression of disability but not stopping it or not reversing it. Often you stay on these drugs indefinitely. A transplant, on the other hand, is a one-time treatment and afterwards, you get better, your neurologic disability reverses, nothing else had done that.” It's important to consider the disease trajectory, risks, and benefits of stem cell transplants. 14:02 “MS causes accelerated loss of brain volume, that is brain atrophy. Unfortunately, as we age, we get brain atrophy and a normal, very low, but normal decline. But once you get MS, that decline takes a much sharper drop, and you're losing neural function a lot faster than normal ageing. For some reason, that's not viewed as a sub-acute or semi-emergency situation that you want to reverse. Traditional drugs have mostly just slowed that rate of decline, but it's still faster than what happens with normal ageing. I would think a more aggressive approach up front would be wise, but you always have to remember [the] risk–benefit. If we could do a stem cell transplant with zero risk of mortality, I would say absolutely for everybody. But you can't do that right now.” A medical speciality and institute for autoimmunology could help push the field forward 34:20 “There are 80 different autoimmune diseases that I can think of offhand. They're all “homeless” in different departments like Crohn's disease [which is] in gastroenterology, Scleroderma [which] is in rheumatology, and multiple sclerosis [which] is in neurology. They're all separated [into] different areas. If there was a better organisation, beginning at a federal level with a national institute of autoimmune diseases that supports centres of excellence around the country, that would really help this go forward.” Want to learn more about living a full and happy life with multiple sclerosis?  Sign up to our newsletter to hear our latest tips. More info and links: Visit Professor Burt's website Read Professor Burt's new book on HSCT for autoimmune diseases ‘Everyday Miracles' Check out Professor Burt's medical textbook ‘Hematopoietic Stem Cell Transplantation and Cellular Therapies for Autoimmune Diseases' Find out more about the StarMS trial in the UK New to Overcoming MS? Visit our introductory page  Connect with others following Overcoming MS on the Live Well Hub Visit the Overcoming MS website Follow us on social media: Facebook Instagram YouTube Pinterest Don't miss out:  Subscribe to this podcast and never miss an episode. Listen to our archive of Living Well with MS episodes here. If you like Living Well with MS, please leave a 5-star review. Feel free to share your comments and suggestions for future guests and episode topics by emailing podcast@overcomingms.org. Make sure you sign up to our newsletter to hear our latest tips and news about living a full and happy life with MS. Support us:  If you enjoy this podcast and want to support the ongoing work of Overcoming MS, we would really appreciate it if you could leave a donation here. Every donation, however small, helps us to share the podcast with more people on how to live well with MS. Professor Richard Burt's bio: Professor Richard Burt is a Fulbright Scholar, Professor of Medicine at Scripps Health Care, tenured retired Professor of Medicine at Northwestern University, and CEO of Genani Biotechnology. He endeavored for 35 years, first with animal models and then with some of the world's first clinical trials, to bring the field of stem cell and cellular therapy to the patients' bedsides. Publishing Professor Burt has published more than 145 first-author articles and is the editor of four medical textbooks. He was the first Autoimmune Committee Chairperson for the International Bone Marrow Transplant Registry (IBMTR) and was the principal investigator of a National Institutes of Health (NIH) $10 million multicenter contract to develop stem cell clinical trials for autoimmune diseases. Hematopoietic stem cell transplants Professor Burt performed America's first hematopoietic stem cell transplant (HSCT) for multiple sclerosis (MS), systemic lupus erythematosus (SLE), Crohn's disease (CD), stiff person syndrome (SPS), and chronic inflammatory demyelinating polyneuropathy (CIDP) and published the world's first randomised clinical stem cell transplantation trials for systemic sclerosis and multiple sclerosis. Awards and achievements He has been awarded the Leukemia Scholar of America, the Lupus Foundation of America Fidelitas Award, the van Bekkum Award by the European Society for Blood and Marrow Transplantation, the Distinguished Clinical Achievement Award by the Clinical Research Forum, and the European Group for Blood and Marrow Transplantation Clinical Achievement Award. Professor Burt was presented in Vatican City, Rome, with the “Keys to the Vatican,” was a speaker at the Festival of Thinkers in Leadership in Healthcare in the United Arab Emirates and chaired the biotechnology session at the Baku Azerbaijan International Humanitarian Forum. Professor Burt was recognised by Science Illustrated for accomplishing one of the top 10 medical breakthroughs for the next 10 years and by Scientific American as one of the top 50 individuals for improving humanity and outstanding leadership.

Dr. Anna Wolska from the Lupus Foundation of America interviews Drs. Anca Askanase and Joan Merrill, the developers of the LFA-REAL tool. Together, they discuss the importance of using a tool like LFA-REAL to understand how clinician and patient reported outcomes are essential for understanding efficacy and effectiveness of experimental therapeutics developed to treat people living with lupus.   Read the article: http://dx.doi.org/10.1136/lupus-2022-000875

For over 40 years, she's been a key member of The Young & the Restless. You know her as "Esther Valentine", Katherine Chancellor's housekeeper. In 2008, she received a star on the Hollywood Walk of Fame. She never quit her pre-Young & the Restless weekend job as a flight attendant for United Airlines because she said it helps "keep her grounded". In 2005, she was named the celebrity spokesperson for the ALS Association. Kate devotes her time to her work and multiple charities such as the March of Dimes, the Lupus Foundation, Los Angeles Mission, and many other charities. A huge thank you to Kate for taking the time to speak with me on the SEE THE UNSEEN Podcast in hopes that in some way it will help others.

Dr. Anna Wolska from the Lupus Foundation of America interviews Dr. Amrie Grammer and Dr. Peter Lipsky from AMPEL BioSolutions. Together they describe the molecular endotypes of Type 1 and Type 2 Systemic Lupus Erythematosus. This episode uncovers the distinct molecular profiles of these SLE types and paves the way for personalized treatment approaches based on these classifications.   Link to published paper: https://lupus.bmj.com/content/10/1/e000861

Dr. Anna Wolska from the Lupus Foundation of America interviews Dr. Ian Bruce, from the University of Manchester in the UK. Dr Bruce discusses the time to onset of clinical response to Anifrolumab in patients with Systemic Lupus Erythematosus. The episode delves into pooled data from two significant Phase III trials, TULIP-1 and TULIP-2, offering listeners a deep understanding of the effectiveness and timeline of Anifrolumab treatment.   Read the article: http://dx.doi.org/10.1136/lupus-2022-000761

Dr. Anna Wolska from the Lupus Foundation of America interviews Dr. Andrea Fava from Johns Hopkins University about Belimumab treatment in lupus nephritis. Dr Fava elucidates on the correlation between the decrease in urinary CD163 levels and the response to Belimumab treatment in Lupus Nephritis trials. The conversation provides important insights into the efficacy of this treatment option and potential biomarker use for personalized and precision medicine in the future.   Read the article: dx.doi.org/10.1136/lupus-2022-000763

Dr. Anna Wolska from the Lupus Foundation of America interviews Dr. Andrea Fava from Johns Hopkins University about Belimumab treatment in lupus nephritis. Dr Fava elucidates on the correlation between the decrease in urinary CD163 levels and the response to Belimumab treatment in Lupus Nephritis trials. The conversation provides important insights into the efficacy of this treatment option and potential biomarker use for personalized and precision medicine in the future. Read the article: http://dx.doi.org/10.1136/lupus-2022-000763

Faheem and Nelly J chat with special guest Karen Miller @KarenMiller97 • Basketball Coach • Positive Direction (PD Nation) • Coach with CYO - Catholic Youth Organization • Ambassador for Lupus Foundation https://support.lupus.org/site/TR/WTELN/General?pg=entry&fr_id=1883 We start episode 139 and introduce Karen Miller to the podcast where we discuss the status of women's basketball, the impact the much publicized rivalry between Angel Reese and Caitlan Clark has on the future of the women's game and how past stereotypes are being dismissed in the women's game. In our FOR THE CULTURE segment we highlight Karen Miller (PDNation, Ambassador for Lupus Foundation) where we discuss her unique coaching relationship with her players, instances where she applies her leadership skills and how she has turned a Lupus diagnosis into a positive experience by inspiring others. We then conclude episode 139 with THAT'S ABSURD to discuss the comment from a gambling fan who told Toronto Raptors player Chris Boucher "I chose the wrong slave" after Boucher failed to make the fan's parlay bet. Please comment and share your thoughts, thanks for taking the time to watch or listen to the episode GOOD ROOKIES. DO GOOD and BE GOOD. Do you have a great topic suggestion? Please email us goodrookiespodcast@gmail.com

Lupus is an auto-immune disease that affects millions around the world. It's most common in women and causes a person's immune to attack itself resulting in pain throughout the body. Because the illness often looks different in every patient, it can go undetected for years. Roberto Caricchio, MD, the Myles J. McDonough Chair of Rheumatology, professor of medicine and chief of the Division of Rheumatology in the Department of Medicine, explains what you need to know about lupus and highlights how the new UMass Chan Lupus Center will support patients. On May 2, UMass Chan and the Lupus Foundation of New England are hosting a Lupus Medical & Educational Symposium at the Beechwood Hotel in Worcester for patients, families and caregivers. For more information: https://lupusne.org/events/lupus-scientific-patient-education-symposium/

As a TV reporter of 25 years, I like to think that I know a lot about a lot of things. And I've always heard about lupus, but as I was doing research for the show, I was like, do I really even know what lupus is? To talk about that today, Liz Roth, she's the CEO and President of the Lone Star Chapter of the Lupus Foundation of America.

With 27 years of personal training experience, Curtis Starks has EVOlved as a “trend setter,” being one of Birmingham's top personal trainers, whose mission is to get people moving and seeking a healthier lifestyle. He has trained at some of Birmingham's top facilities such as the YMCA, Gold's Gym, Fitness Together, and the Birmingham City Fitness Center. His training is not limited to Birmingham Alabama, he has trained and lead workshops in Houston, Rhode Island New York, and Minneapolis. He is the founder and owner of TRAIN & BURN Fitness Studio in downtown Birmingham, which is a personal training Fitness Studio and home to the H.I.I.T (High Intensity Interval Training) and TRX group training class. His program design includes functional training, nutrition education, and lifestyle changes as a way to achieve and maintain desired weights and healthier lifestyles. He assesses each client, and prescribes the appropriate individual training program. Recently, TRAIN & BURN expanded its services to include corporate clients, like ACIPCO Credit Union, US Auto Logistics of Birmingham, A.M.T Medical Staffing and the City of Birmingham. Curtis attended Samford University and is a certified Personal Trainer by The Aerobics and Fitness Association of America (AFAA) now NSAM, and is a member of the Nation Fitness Business Alliance (NFBA). In addition to managing his business, Curtis's mission is to eradicate obesity, and has consulted with UAB on solutions to fight this epidemic. He piloted a program which provided guidance to teachers on moderate intensity activities for children during playtime. At Birmingham Southern, he conducts a year-round Boot Camp aerobics class; and at the University of West Florida, he conducted a health and fitness workshop. He has also been recognized by Who's Who in Black Alabama, the 2014 Best of Birmingham Awards for Personal Trainers, the NAACP for Outstanding Community Service, and he volunteers in the community by participating in health fairs, speaking engagements and organizing group runs. Curtis was instrumental in the development, design, and instruction of the fitness course for Blue Cross Blue Shield's health initiative, “GET HEALTHY IN THE PARK” (at Railroad Park). He has developed summer fitness programs for two Birmingham area YMCA's called EVO KIDS, designed specifically for youth ages 10 to 16 years. He has also successfully trained collegiate, NFL and AFL athletes. Curtis has been featured as a trainer on TLC's Ultimate Make Over, seen on ABC 33-40 “Talk of Alabama,” is featured regularly on FOX 6's “Exercise Monday,” with Jeh Jeh Pruitt, and has been recognized in Birmingham News and Birmingham Times as one of the city's top personal trainers. Curtis was recently featured in the 5th Edition of the 2016 Birmingham Magazine, and is founder of the 5k Fit Challenge for Children's Hospital and the Lupus Foundation of America Mid South Chapter. His voice can be heard weekly on national radio talk shows. Curtis is a Christian, the father to an 17 year old son, a mentor, innovator, and a hard working businessman. His faith, perseverance and dedication define his success; but his character, loyalty and work ethic are the qualities that attract and retain his clients.

I have Bill on today to talk about his upcoming Hardcore Cares benefit show that he has been putting on for years donating to different organizations and charities. This year his choice of charity is to the Lupus Foundation of Michigan. His had a hand in picking it because she is dealing with Lupus herself. There's no cure for it and you can learn about it in the podcast!    We also dive in to addiction and recovery because thats also a big part of his life as recovering alcoholic. If you yourself need help or know anyone - You always have people to talk to. Were here for you.  He cares so much about hardcore and the culture itself. He's been around for ages and has seen it all! 

Season TWO Episode EIGHTEEN of the Your Story Our Fight® podcast welcomes J. Christopher Reed. Christopher Reed was diagnosed with lupus in 1990 at the age of 16. Despite several serious attacks to his organ system, he earned a bachelor's degree with honors from the Georgia State University and a law degree from Tulane University. He managed his first job out of law school juggling lupus nephritis and horrible chemotherapy treatments.  After an 18 year career in litigation, Christopher has devoted his life to public health and health policy. He is the Policy, Advocacy, and Mobilization Manager for SisterLove, Inc. an organization that is devoted to eradicating challenges to reproductive health and HIV/AIDS. He is a contractor for the American College of Rheumatology, the University of Alabama, and the Lupus Research Alliance on three separate projects devoted to increasing minority participation in clinical trials. He is also an advocate, moderator, and writer for Lupus.net. He now serves as a Support Group Facilitator, Advocacy Chair, and Project Manager for the Lupus Foundation of America-Georgia Chapter. His support group, designed specifically for men, is the first of its kind in the United States. He was appointment by the state and then chaired the Georgia Council on Lupus Education and Awareness (Council) an advisory council created and funded by the state of Georgia. As Chair he established the Georgia Lupus Collaborative, a 60 person multidisciplinary advisory group and think tank charged with improving the lives of people with lupus in Georgia. He was one of twelve panelists chosen to speak at the historical Lupus Patient Focused Drug Development meeting in 2017. 

Celebrate 40 years of “Esther Valentine” with actress Kate Linder live in The Locher Room. Kate made her debut on CBS's The Young and the Restless 40 years ago this month and remains a vital member of the top-rated daytime drama's cast.Kate received a star on the Hollywood Walk of Fame on April 10, 2008 where then-LA Mayor Antonio Villaraigosa, Y&R co-creator Lee Phillip Bell and castmate Jeanne Cooper spoke. In addition to her role as Esther, Kate has had roles in the feature films Hysteria (2012) and Erased (2013), Miss Meadows (2014), Garry Marshall's Mother's Day (2016), Voice from the Stone (2017) The Charnel House (2017) and Echo Boomers (2020). She will be seen next in the features Charlie Matthau's Book of Leah and Shriver.If you're Kate Linder, you don't quit your job as a United Airlines flight attendant because you're cast for a one-day, one-line role on The Young and the Restless. Linder has done both jobs simultaneously for the 40 years she's been on the show.Kate was named celebrity spokesperson for The ALS Association in early 2005. Her late brother-in-law was diagnosed with ALS (Lou Gehrig's disease) in December 2004 and Kate went to Washington, DC many times to lobby for more funds to fight this disease with no cure. Kate is also active with many AIDS charities, Habitat for Humanity, and the Los Angeles Mission. For the past few years, Linder has proudly served as Grand Marshal for the Lupus Foundation of America's Walk to End Lupus Now. Kate continues to be very active with the March of Dimes Canada and is the Ambassador for their Conductive Education Program.Original Airdate: 4/6/2022

Rebecca and Stephen's sister Stephani E. D. McDow joins Bi-Polar Girl to discuss her life with lupus, as an award winning author, and poet. Stephani delivers a live reading of her poem 'Discernment'. Connect with Stephani Website: https://stephanimcdow.com/contact-us/ TikTok: https://www.tiktok.com/@peculiarwriter Goodreads: https://www.goodreads.com/author/show/14678553.Stephani_E_D_McDow Stephani asked if you will support the Lupus Foundation: https://www.lupus.org Connect with Bi-Polar Girl Website: https://bipolargirlpodcast.com Facebook: https://www.facebook.com/bipolargirlpodcast/ Twitter: https://twitter.com/bipolargirlpod Song Of The Week Lazy Daze By Tank and the Bangas: https://music.apple.com/us/album/lazy-daze-feat-robert-glasper/1454294605?i=1454294835 Rolling Weekly Credits Inspirational Words From Lisa Nichols: https://motivatingthemasses.com/ Eva By Punctual: https://music.apple.com/us/album/eva/1162126046?i=1162126081 Panamericana By Tango 3.0:  https://music.apple.com/us/album/panamericana/1544977199?i=1544977619 Connect Guest Hosts Aimee Daramus, Psy. D. LCP: https://www.audeotherapy.com Joelle Rabow Maletis, MA. Ed, MA, LMFT: https://joellerabowmaletis.com/about-us/

Yvonne Nava is an anchor at KVUE in Austin, Texas. Yvonne starts her day bright and early with the Daybreak team. You can catch her behind the desk weekdays from 5 to 7 a.m. and on Midday at 11 a.m. Yvonne has reported and anchored across the country for more than a decade and is so happy to be back in her home state. In her years with KVUE, Yvonne has been recognized numerous times by the Texas Associated Press for her anchoring. Born and raised in Laredo, Yvonne jumped into the business at the age of 18 when she started reporting for Telemundo. While attending the University of Texas at Austin, she graduated with degrees in broadcast journalism and business. During her senior year she was recognized by Hispanic Magazine for being an outstanding role model for Latinas. After graduating from UT, Yvonne got her first anchoring job at KACB in San Angelo, Texas. Her next move took her to KCBD in Lubbock, Texas, where she anchored the weekend evening news, covering everything from deadly tornadoes to the Columbia space shuttle disaster. After less than two years, she was off to Tennessee at WATE in Knoxville, where she helped launch the station's weekend morning newscast. Yvonne's journey through journalism then took her to the beaches of sunny South Florida. In 2005, she joined WPLG in Miami as a breaking news reporter and anchor. She covered everything from Fidel Castro to Hurricane Katrina. After Miami she was off to Connecticut where she anchored their weekday morning newscast and her days consisted of wall-to-wall coverage of massive blizzards instead of tropical storms. In the Nutmeg State, Yvonne was also named one of Hartford's Top 40 Under 40 which is given to people in Connecticut who are positive role models in the community. Her career highlights include traveling to rural Mexico, where she discovered contaminated vegetables were the cause of a Hepatitis A outbreak in East Tennessee. She also reported on the capture of Eric Rudolph, the Olympic Park bomber, in North Carolina. Outside of work, Yvonne enjoys being active in the community. She has volunteered with the American Parkinson's Disease Association, the Susan G. Komen Breast Cancer Foundation and their Race for the Cure, the American Red Cross, the Lupus Foundation, the Salvation Army and Meals on Wheels. Yvonne enjoys mentoring young girls with GenAustin because she remembers how impressionable she was as that age. She believes it's important for young girls to know that they control their own destiny, which includes not only their career path, but their overall happiness as well. On the weekends, Yvonne loves to go exploring with all her boys -- her husband, Alex, and her sons. Together they like to go off the beaten path by going on road trips and visiting different museums and restaurants. And now that she is close to family, you can definitely add football tailgates and backyard barbecues to the list! Watch Yvonne every weekday morning and be sure to follow her on Instagram @yvonnefromkvue or on Twitter @YvonneN_KVUE 

Nyobie grew up knowing there was something different about her body. As a young woman, she was plagued by unexplained symptoms doctors initially dismissed as part of puberty. But persistent pain and swelling in her arms and legs were just the beginning of her battle. After 19 years of being silenced and misled, Nyobie finally found a life-changing doctor - and diagnosis. *  *  *  *  *  * ****** SPOILER ALERT BELOW ****** If you're looking for more information on Lupus, you can check out the Lupus Foundation of America by heading to Lupus.org. You can also learn more about Nyobie Gordon-Rick and the work of National Health Educator Leticia Ocaña.See omnystudio.com/listener for privacy information.

Clinical trials make new and better treatments for lupus possible. In this episode of The Expert Series, we sit down and talk with Stephanie Slan, Director of IMPACT+ (Improving Minority Participation and Awareness in Clinical Trials) at the Lupus Foundation of America about clinical trial participation. Stephanie also debunks some myths about clinical trials might keep people from wanting to participate. It's important for people with lupus to consider participating in these trials to further the advancement of lupus medicines and treatment. This episode breaks down eligibility criteria, what happens during a clinical trial, and what happens with your information after a trial. Listen to learn more To learn more about clinical trials, read more about participating in clinical trials here or about frequently asked questions here If you are interested in participating in research, visit: Lupus.org/RAY SUBSCRIBE to receive an email update when new episodes of The Expert Series are released.

Season 3: Ep 10: Join Tarina Roberts as she interview Floyd Boykin Jr as he shares his experience with losing his mom from complications of Lupus, his involvement with the Lupus Foundation of America Heartland.

Show Notes (contains affiliate links): Why is Ham Radio So Complicated?   On this week's episode of Ham Radio Crash Course, a podcast roughly based on amateur radio but mostly made up of responding to emails from listeners, hosted by Josh Nass - KI6NAZ and his reluctant wife, Leah - KN6NWZ, we talk about Ham Radio Kit Redundancy, PrepTok and low cost heating methods and the overcomplication of ham radio.   Have a drink with us! Today, we're drinking… Jameson and Ginger with a Twist   Josh has a short tip with the Ham Radio Minute: Ham Radio Kit Redundancy    Join the conversation by leaving a review on iTunes for Ham Radio Crash Course podcast at https://podcasts.apple.com/us/podcast/ham-radio-crash-course/id1400794852 and/or emailing Leah@hamtactical.com. Leaving a review wherever you listen to podcasts will help Ham Radio Crash Course reach more hams and future hams and we appreciate it!   What We Used This Week:    Josh suggests the GoRuck Plate Carrier (https://www.goruck.com/products/rucker-3-0), iPhone 13 (https://amzn.to/3DFCPCo) and IC-705 Tuner (https://amzn.to/2YP3uht).    Leah suggests portable greenhouse (https://amzn.to/3lGyclb).  Ham Radio Crash Course A-store: https://www.amazon.com/shop/hamradiocrashcourse   Preparedness Corner: Leah recommends Preptok and thinking about how to reduce your heating costs this coming winter. Lupus Foundation has a list of organizations that will also help you with utility costs if you are in need: https://www.lupus.org/resources/housing-and-utility-assistance    Email Correspondent's Tower: We answer emails with ham radio questions, comments on previous podcasts, T-shirt suggestions and everything in between.   Links mentioned in the ECT:    Palomar Engineering Ferrite Core Products: https://palomar-engineers.com/ferrite-products/ Use HRCC73 coupon code to save on your purchase.    Natalie Portman Raps (NOT SAFE FOR WORK!!) https://youtu.be/-A0iftflme4 (Apologies for the vulgarity.)   Nathan's Southern Vermont Ham Radio YouTube Channel: https://youtube.com/channel/UCcvbSWxFngDIGvtTI10gSpA   Show Topic: The Overcomplication of Ham Radio Thank you all for listening to the podcast.  We have a lot of fun making it and the fact you listen and send us feedback means alot to us!   Want to send us something? Josh Nass  P.O. Box 5101 Cerritos, CA 90703-5101 Support the Ham Radio Crash Course Podcast: Patreon - https://www.patreon.com/hoshnasi Shop HamTactical: http://www.hamtactical.com Shop Our Affiliates: http://hamradiocrashcourse.com/affiliates/ Shop Our Amazon Store: https://www.amazon.com/shop/hamradiocrashcourse As an Amazon Associate I earn from qualifying purchases.   Connect with Us: Website...................► http://hamradiocrashcourse.com YouTube..................► https://www.youtube.com/c/HamRadioCrashCourse Podcast...................► https://hamradiocrashcourse.podbean.com/ Discord....................► https://discord.gg/xhJMxDT Facebook................► https://goo.gl/cv5rEQ Twitter......................► https://twitter.com/Hoshnasi Instagram.................► https://instagram.com/hoshnasi (Josh) Instagram.................►https://instagram.com/hamtactical (Leah)