Podcasts about take part

This is The Briefing, a daily analysis of news and events from a Christian worldview.On today's edition of The Briefing, Dr. Mohler discusses a Planned Parenthood's clinic use of botox for ‘bodily autonomy,' and he answers questions about the susceptibility of the Right to conspiracy theories, what Christians should make of Anti-semitic conspiracy theories, discussing issues in Israel with other believers, and if a local church should allow a homosexual couple to take part in the church's baby dedication.Part I (00:13 – 09:57)A Planned Parenthood Clinic Does Botox? As You Might Suspect, It's About ‘Bodily Autonomy'A Planned Parenthood Clinic, in a Pinch, Turns to Botox by The New York Times (Alisha Haridasani Gupta)Part II (09:57 – 13:46)Why are Those on the Right Susceptible to Believing in Conspiracy Theories? — Dr. Mohler Responds to a Letter From a 16-Year-Old Listener of The BriefingPart III (13:46 – 21:32)What Should Christians Make of Anti-semitic Conspiracy Theories? — Dr. Mohler Responds to a Letter From a 16-Year-Old Listener of The BriefingPart IV (21:32 – 24:30)How Should I Discuss Support for Israel with People in My Church? — Dr. Mohler Responds to a Letter From a 16-Year-Old Listener of The BriefingPart V (24:30 – 26:54)Should We Allow a Homosexual Couple to Take Part in a Baby Dedication in Our Local Church? — Dr. Mohler Responds to Letters From a Listeners of The BriefingSign up to receive The Briefing in your inbox every weekday morning.Follow Dr. Mohler:X | Instagram | Facebook | YouTubeFor more information on The Southern Baptist Theological Seminary, go to sbts.edu.For more information on Boyce College, just go to BoyceCollege.com.To write Dr. Mohler or submit a question for The Mailbox, go here.

Jackson Potter, Vice President, Chicago Teachers Union, joins John Williams to talk about the effort to close schools on May 1st so students and teachers can take part in a civic day of action.

Jackson Potter, Vice President, Chicago Teachers Union, joins John Williams to talk about the effort to close schools on May 1st so students and teachers can take part in a civic day of action.

Jackson Potter, Vice President, Chicago Teachers Union, joins John Williams to talk about the effort to close schools on May 1st so students and teachers can take part in a civic day of action.

Ken Early, Second Captains Podcast host, discusses the chances of the Iranian soccer team taking part in the 2026 World Cup in the United States.

Iran's sports minister says the country can't take part in the World Cup because of US attacks. Correspondent Gethin Coolbaugh reports.

It's the second time it's run such a review and the Commission says it needs to be anonymous due to supplier hesitation.

For 17 Years, Triskelion Australia Sydney NSW Inc. members have volunteered to protect the environment, demonstrating strong unity and dedication to the community. - Labing pitong taon nang tuluy-tuloy na nagboboluntaryo ang mga miyembro ng Triskelion Australia Sydney, NSW Incorporated sa paglilingkod at pangangalaga sa kalikasan, patunay ng kanilang matibay na pagkakaisa at malasakit sa komunidad.

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3 ans sans vacances. C'est le prix qu'elle a payé pour devenir la seule femme noire en Europe à obtenir l'agrément de l'AMF.Dans cet épisode exceptionnel de Kalimanjaro, nous recevons Shaïla Sahai, Fondatrice et CEO de We Take Part, une plateforme de financement participatif régulée par l'Autorité des Marchés Financiers. Avec 20 ans d'expérience dans la finance, Shaïla incarne la résilience, la détermination et la vision d'un investissement qui crée du sens.Shaïla Sahai nous raconte son parcours hors du commun. De la finance de marché au back-office titre, de la monétique Visa à la création de sa propre plateforme régulée. Un parcours technique, exigeant, semé d'embûches administratives et réglementaires. "Si j'avais su, je n'y serais pas allée", confie-t-elle. Mais elle l'a fait. Et elle a réussi.L'épisode explore les sacrifices de l'entrepreneuriat. 3 ans sans vacances. Des nuits blanches. Des moments de doute. Mais aussi une foi inébranlable en sa mission : démocratiser l'investissement à impact, notamment en Afrique et en Éthiopie.Shaïla partage également sa vision de la finance à impact. Comment investir dans des projets qui créent de la valeur économique ET sociale ? Comment structurer un business plan solide pour convaincre les investisseurs ? Comment naviguer dans un univers ultra-régulé tout en restant fidèle à ses valeurs ?Enfin, elle nous livre des conseils puissants pour les entrepreneurs : revoyez vos ambitions à la hausse. Prenez du recul. Méditez. Progressez pas à pas. Et surtout, n'abandonnez jamais.Un épisode inspirant, profond et nécessaire pour tous ceux qui veulent entreprendre avec impact.Suivez Shaïla Sahai sur LinkedIn : https://www.linkedin.com/in/shailasahai/

In this provocative episode, Bob and Josh flip the script on their usual leadership-focused content. Instead of critiquing leaders, they're calling out team members who constantly blame their bosses for everything that's wrong.Bob opens with a pattern he's observed for decades: the endless "we could do X if only they would get on board" mentality that permeates lean coffees, webinars, and workplace conversations. He's tired of watching people demonize, marginalize, and stereotype their leaders without any self-reflection.Josh shares his personal journey of learning to "manage up" — a transformation that began when he admitted to Bob that he was frustrated with his own leaders. What started as finger-pointing became a year-long commitment to understanding what leaders actually face. The result? A complete perspective shift. Once Josh understood the impossible balancing acts, the endless problem-solving, and the human struggles behind the title, his frustration transformed into partnership.The hosts challenge listeners to:Stop using phrases like "that's above my pay grade" as a way to wash their hands of problemsAssume positive intent from leadersRemember that leaders are humans first — they bleed, they have bad days, they're often only 3-5 years into their leadership journeyGet in the game instead of sitting in the stands judgingAsk questions to understand rather than criticizeJosh shares a powerful story about his child's sports coach who admitted, "I'm still learning how to be a coach. I'm asking you to be patient with me." That vulnerability and honesty is exactly what most leaders are experiencing but rarely feel safe enough to express.The takeaway: You are part of the problem. Take part in your own rescue. Flip the script. Stay Connected and Informed with Our NewslettersJosh Anderson's "Leadership Lighthouse"Dive deeper into the world of Agile leadership and management with Josh Anderson's "Leadership Lighthouse." This bi-weekly newsletter offers insights, tips, and personal stories to help you navigate the complexities of leadership in today's fast-paced tech environment. Whether you're a new manager or a seasoned leader, you'll find valuable guidance and practical advice to enhance your leadership skills. Subscribe to "Leadership Lighthouse" for the latest articles and exclusive content right to your inbox.Subscribe hereBob Galen's "Agile Moose"Bob Galen's "Agile Moose" is a must-read for anyone interested in Agile practices, team dynamics, and personal growth within the tech industry. The newsletter features in-depth analysis, case studies, and actionable tips to help you excel in your Agile journey. Bob brings his extensive experience and thoughtful perspectives directly to you, covering everything from foundational Agile concepts to advanced techniques. Join a community of Agile enthusiasts and practitioners by subscribing to "Agile Moose."Subscribe hereDo More Than Listen:We publish video versions of every episode and post them on our YouTube page.Help Us Spread The Word: Love our content? Help us out by...

Do you want a chance to win a £50 Amazon voucher? Listen to this to find out how.... Click this link to complete our short survey: https://info.allianz.co.uk/insurance-tomorrow-podcast-survey.html The opening date for competition entries is 06:00 GMT on 16 February 2026 and the closing date for entries is 06:00 on 3 March 2026. You can still share your thoughts outside of these times, but you won’t be entered into the prize draw. Full competition T&Cs can be found at: https://www.allianz.co.uk/insurance-tomorrow-listeners-prize-draw.html See omnystudio.com/listener for privacy information.

Thursday, February 5, 2026 - Week 6 Happy #RareDisease & #BlackHistory Month!   #NaturalHistory means how this disease progresses.  Reminder: We have only been at this for 17 years, first patients were identified via Hamdan, 2009. https://pubmed.ncbi.nlm.nih.gov/19196676/   Retrospective Digital NHS: cureSYNGAP1.org/Citizen (Growing list of tools available to families, for free)   Prospective Multi-disciplinary Multi-site NHS: ProMMiS cureSYNGAP1.org/ProMMiS   Reminder, only possible by CS1 support for non-CHOP sites and travel plus huge gift to Penn. https://www.chop.edu/news/25-million-gift-penn-medicine-and-children-s-hospital-philadelphia-establishes-center-epilepsy   Potential for being a control arm in the future.   Protocol: https://www.linkedin.com/posts/curesyngap1_syngap1-stxbp1-dee-activity-7425223573134327808-SVEQ & early data: https://pubmed.ncbi.nlm.nih.gov/40119723/   Join the ~160 families who have enjoyed excellent clinical care and contributed tot he future of SYNGAP1.  Today, a 4 month old is going! CHOP: 119 new, V2- 67, V3- 32, V4- 10, V5- 4 CHCO: 37 new, V2- 7 Stanford: 8 new, V2- 2 Total: 164 (double counting one family who goes to multiple sites)   Survey English: https://curesyngap1.org/SurveyProMMiS Spanish: https://curesyngap1.org/encuestaProMMiS   94 Responses to survey, so far: Why not? Did not receive an invitation, Too far to travel, Too expensive Barriers: Logistics, Cost, Time off, Behaviors, Insurance   ETC. Pubmed 2026 is at 6!  But will soon be 7 with the McKee paper! https://pubmed.ncbi.nlm.nih.gov/?term=syngap1&filter=years.2026-2026&sort=date   Biorepository needs more samples.  Check out the list and map here https://docs.google.com/presentation/d/1IjaHILXj7AlBDlbTJgvYrkBS_0bnI8VCnTIiPXJ7JGM/edit?usp=sharing and contribute blood.  The data and research we do with these samples is invaluable.   May 28, San Francisco, CA: cureSYNGAP1.org/SF26   SOCIAL MATTERS 4,668 LinkedIn.  https://www.linkedin.com/company/curesyngap1/ 1,520 YouTube.  https://www.youtube.com/@CureSYNGAP1 11.2k Twitter https://twitter.com/cureSYNGAP1 45k Insta https://www.instagram.com/curesyngap1/   $CAMP stock is at $3.59 on 5 Feb. ‘26 https://www.google.com/finance/beta/quote/CAMP:NASDAQ   Like and subscribe to this podcast wherever you listen.  https://curesyngap1.org/podcasts/syngap10/ Episode 198 of #Syngap10 #CureSYNGAP1 #Podcast

Carl and Mike are joined by Joey Maloney as they discuss the latest on the possibility of legalized gambling coming to Georgia and the obstacles being faced to try and get gambling legalized in Georgia.

Waweru Gathecha, Talks Architecture, Farming & Challenges Us To Take Part In The Moral Revolution. by Capital FM

Learn more about your ad choices. Visit megaphone.fm/adchoices

The Indiana Hoosiers wrote the final chapter of a remarkable season Monday night, beating Miami, 27 to 21, in the college football championship game. Hundreds of students at Carmel High School walked out Tuesday afternoon as part of a nationwide protest against the Trump Administration. Lawmakers are once again trying to dissolve some township governments in Indiana. Indianapolis Public Schools is changing its official stance on undocumented students following a lawsuit from the state's attorney general. Want to go deeper on the stories you hear on WFYI News Now? Visit wfyi.org/news and follow us on social media to get comprehensive analysis and local news daily. Subscribe to WFYI News Now wherever you get your podcasts. WFYI News Now is produced by Zach Bundy, with support from News Director Sarah Neal-Estes.

One year after President Donald Trump's second inauguration, West Virginians took to the streets Tuesday to express their frustrations with recent policy changes at home and in Washington. The post Residents Take Part In National Protest Movement, This West Virginia Morning appeared first on West Virginia Public Broadcasting.

Bring your spades and gloves and get involved in planting at the Avenue Pavilion. It is the distribution point for trees from the Town Council’s Free Tree Scheme and the PeCAN Fruit Tree in Every Garden Scheme. It’s a also a great way to get involved and chat with the new Town Ranger, PeCAN, The Community Garden and the Tree Wardens. Julie Butler went along along to meet the team and find out all about The Green Gathering and what is coming up on their calendarSee omnystudio.com/listener for privacy information.

CES 2026 Quick Take: Physical AI, Ambient AI, and the Reality of AdoptionIn this episode, Maribel Lopez, founder and principal analyst at Lopez Research, is joined by Julie Ask, founder of Ask Advisory, for a candid, unscripted conversation on what CES 2026 actually revealed about the state of AI.Rather than focusing on flashy demos or speculative promises, Maribel and Julie examine where AI is delivering real value today—and where expectations are running ahead of reality. Julie's bioJulie is a prominent customer experience analyst, technology futurist, and digital product strategist who has advised hundreds of global brands on the impact emerging technologies (e.g., mobile, sensors, extended reality, networks, AI) can and will have on customer experiences. She actively works with enterprises and vendors to understand how technology and consumer trends will impact their business with a deep focus on customer engagement strategies. For more than 25 years, her work has defined the evolution of consumer digital experiences and inspired brands to take action. Her combined background in engineering and business gives her a unique ability to help business leaders understand what is possible and leverage technology to drive business outcomes. She has appeared frequently on Bloomberg while her research has been cited by the Wall Street Journal, New York Times, Financial Times, and a breadth of marketing publications. She co-authored The Mobile Mind Shift book in 2014. She founded Julie Ask Advisory in 2024 to pursue her passion for helping business leaders understand the impact of AI on experiences. 

This is your afternoon All Local update for December 6, 2025.

Nate Johns, his brother and his cousins take part in Living on the Streets of Buffalo full 369 Tue, 25 Nov 2025 12:20:00 +0000 viVuEHp4WOVSBLZjyTFpsJELBTqOV0Kw buffalo,news,wben A New Morning buffalo,news,wben Nate Johns, his brother and his cousins take part in Living on the Streets of Buffalo Collection of LIVE interviews from Buffalo's Early News on WBEN 2024 © 2021 Audacy, Inc. News False https:/

Grainne Griffin, CCPC Director of Communications, discusses the factors influencing people's purchases during Black Friday and Cyber Monday sales.

Emma O'Kelly, Education correspondent, RTE, discusses the survey of primary school parents by the Department of Education on the ethos of their school.

Matthew 19:10-15

Thor is about to have his first Halloween in the house him and his wife moved in to late last year. He has avoided giving out candy for the past 19 years that he has lived in California but the issue this year is that he is in what may seem like a very Halloween neighborhood. He really doesn't want to give out candy so he is trying to think of any way out of it but we tell him that it is inevitable this year.It's Thursday so you know we gotta play Throwback Trivia! We got a girls game today where Emily takes on Sky!Thor is the last one on The Show in his 30s and Jaime is in Gen Z. We asked Thor what kind of advice he has for Jaime before breaking down a thread we found of advice that 30 year olds have for Gen Z

Thor is about to have his first Halloween in the house him and his wife moved in to late last year. He has avoided giving out candy for the past 19 years that he has lived in California but the issue this year is that he is in what may seem like a very Halloween neighborhood. He really doesn't want to give out candy so he is trying to think of any way out of it but we tell him that it is inevitable this year.It's Thursday so you know we gotta play Throwback Trivia! We got a girls game today where Emily takes on Sky!Thor is the last one on The Show in his 30s and Jaime is in Gen Z. We asked Thor what kind of advice he has for Jaime before breaking down a thread we found of advice that 30 year olds have for Gen Z

Doping is usually a taboo topic in the world of sport, but one new competition is bringing it right into the spotlight.The Enhanced Games not only allow, but encourage athletes to take performance enhancing drugs to boost their performance.They are set to take place next May in Las Vegas, with a number of high-profile athletes already set to compete, including one of Ireland's most celebrated swimmers, Shane Ryan.Sport Ireland has expressed disappointment at his decision to take part, so with the games splitting opinions across the sporting world, what are your thoughts?Managing Editor of Off the Ball Adrian Barry, Sport Editor with Tipp FM Paul Carroll and listeners join Andrea to discuss.

Mary Regan, political editor with the Irish Independent, previews the first debate of the Presidential Election campaign

9.12.25 Hour 2, Kevin Sheehan gives his game take from the Commanders loss vs the Packers, what he liked and did not like. Kevin Sheehan asks callers to give their reaction and thoughts on the Commanders' disappointing loss to the Packers.

Jerry spoke to Seamus O’Neill of I’m Sorry Zero Points Eurovision podcast and to Dana, Ireland’s first Eurovision winner.

RTÉ has announced that it will not take part in the 2026 Eurovision Song contest "if the participation of Israel goes ahead".Elaine Burke, host of the 'For Tech's Sake' podcast, joins The Last Word to discuss the broadcaster's statement and whether other countries may follow suit.Catch the full chat by pressing the 'Play' button on this page!

For reaction Minister for Culture, Communications and Sport Patrick O'Donovan. Emma O Kelly, Chair NUJ Dublin Broadcasting Branch. Conor Devlin - Co-founder and Co-Host of the ÉIREVISION podcast.

North Clare cancer survivors are being invited to take part in a new support initiative. This comes as Gort Cancer Support, in collaboration with the Marie Keating Foundation, prepares to host a six–week Survive & Thrive programme beginning on Wednesday 17th September. To discuss this further, Alan Morrissey was joined by Cara Brady, Centre Manager at Hollyblue House, Gort Cancer Support Group CLG. Photo Credit: Photo (c) Survive&Thrive

International Leaders Bible camp from 1st to 15th August 2025

Josh Peck talks with Emma Clodfelder about her board game, Sh'mot: Escape From Egypt.Support the project here - https://www.kickstarter.com/projects/...To get the audio-only podcast version of full videos and Josh Peck's blog, which includes original articles, show notes, and more, subscribe to Josh's Substack at http://joshpeck.substack.comDonate: http://PayPal.me/JoshPeckDisclosureCashApp: $JoshScottPeckOr send in your donation to:P.O. Box 270123Oklahoma City, OK 73137

In episode 11 of season 3, The Other Personas a Loan Officer Can Take Part 2, we continue the conversation about how stepping into different roles can elevate your presence and performance in today's market. This episode dives deeper into real-world examples of LOs who've embraced unique personas—like the coach, the storyteller, or the local expert—to build stronger connections and stand out online. If you're looking for creative ways to show up differently and drive more engagement, this episode is packed with ideas you can run with.Join The Collective  — our membership designed to help LOs, agents, and solopreneurs grow their pipeline and personal brand without burning out. You'll get monthly trainings on lead gen, branding, AI, and social selling, plus done-for-you DM scripts, proven video templates, bi-weekly coaching from top producers, and access to our private community. Stay consistent. Grow your business. Get started today: https://products.thecollectivecoaching.com

Also, should parents be fined for taking their kids out of school for holidays?

The Great Irish Fossil Hunt is a new campaign run by the Science Department in University College Cork to encourage the Irish public to find fossils and to submit photographs of their discoveries. Terry Flanagan travelled to Co. Tipperary to view fossils with Maria McNamara, Professor of Palaeontology at UCC.

THor is expecting a kid and he has been going through the motions with his wife. However, she is able to feel something that Thor isn't and it is frustrating the both of them

THor is expecting a kid and he has been going through the motions with his wife. However, she is able to feel something that Thor isn't and it is frustrating the both of them

Hour 4 with Bob Pompeani: BREAKING - Oneil Cruz will be in the 2025 Home Run Derby in Atlanta. Michael saw Konnor Griffin at USA baseball as a 16 year old and he has an 80 grade arm at shortstop. They could slam dunk on the pick. He is so high on Griffin becoming a superstar. Austin thinks Cal Raleigh should be the AL MVP. The Pirates picked shortstop Connor Kaiser instead of Raleigh in the third round.

Send us a textVOTE HERE:https://www.patreon.com/posts/poll-round-two-132240243?utm_medium=clipboard_copy&utm_source=copyLink&utm_campaign=postshare_creator&utm_content=join_linkSupport the showTo listen to my monthly church history podcast, subscribe at; https://thehistoryofthechristianchurch.buzzsprout.com For an ad-free version of my podcasts plus the opportunity to enjoy hours of exclusive content and two bonus episodes a month whilst also helping keep the Bible Project Daily Podcast free for listeners everywhere support me at;|PatreonSupport me to continue making great content for listeners everywhere.https://thebibleproject.buzzsprout.com

Dr. Phil Take Part with the LA RiotsSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Former NYPD Commissioner Bernard Kerik will be laid to rest today... Chaos at Jones Beach as teens take part in 'senior skip day' full 494 Fri, 06 Jun 2025 09:47:38 +0000 rGfM0dJqYr13keN4fsycwrUNOi6dmefB news 1010 WINS ALL LOCAL news Former NYPD Commissioner Bernard Kerik will be laid to rest today... Chaos at Jones Beach as teens take part in 'senior skip day' The podcast is hyper-focused on local news, issues and events in the New York City area. This podcast's purpose is to give New Yorkers New York news about their neighborhoods and shine a light on the issues happening in their backyard. 2024 © 2021 Audacy, Inc. News

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Welcome back to season 12! Today, we're digging into what you can expect from us going forward, our thoughts on the kind of place we're building in our corner of the internet, and how you can join us. I'll also share 5 reasons to join our reader- and audience-supported community, including getting on a monthly group call with Yulia every First Friday of the month.Become a Going Places member for as little as $6 a month. Visit our reimagined platform at goingplacesmedia.com to learn more.Going Places is a reader-supported platform. Get membership perks like a monthly group call with Yulia at goingplacesmedia.com!For more BTS of this podcast follow @goingplacesmedia on Instagram and check out our videos on YouTube!Please head over to Apple Podcasts and SUBSCRIBE to the show. If you enjoy this conversation, please share it with others on social and don't forget to tag us @goingplacesmedia!And show us some love, if you have a minute, by rating Going Places or leaving us a review wherever you listen. You'll be helping us to bend the arc of algorithms towards our community — thank you!Going Places with Yulia Denisyuk is a show that sparks a better understanding of people and places near and far by fostering a space for real conversations to occur. Each week, we sit down with travelers, journalists, creators, and people living and working in destinations around the world. Hosted by Yulia Denisyuk, an award-winning travel journalist, photographer, and writer who's worked with National Geographic, The New York Times, BBC Travel, and more. Learn more about our show at goingplacesmedia.com.

A presidential primary organized by the party of jailed Istanbul mayor, Ekrem İmamoğlu, galvanizes millions of voters across Turkey. Also, Costa Ricans are being asked to help pick coffee beans amid a labor shortage in their country, as Nicaraguan migrant farmers stay home over the risks of crossing the border. And, a new graphic cookbook — complete with recipes and comic book-style illustrations — tells the backstories of the unique names behind some Chinese dishes. Plus, for a few days starting this weekend, Saturn's iconic rings will vanish from Earth's point of view — a phenomenon that occurs every 15 years.Listen to today's Music Heard on Air. Learn about your ad choices: dovetail.prx.org/ad-choices

"What we realized was that rare isn't as rare as we think—there are so many of us out here searching for answers, fighting for our kids, and trying to make a difference."- Maria Granados We extend our sincere gratitude to our sponsor for this episode, Gebauer PainEase®. We are pleased to provide more information about this product, and we invite you to learn more by visiting their website. What if a simple miscommunication in the hospital could have cost your child their life? For Maria and Matt Granados, parents of a daughter with Pyroxd1, that terrifying moment led to a groundbreaking realization—and a mission to help other families facing rare diseases. In this powerful episode, we dive into: ✅ The challenges of diagnosing and living with Pyroxd1, a rare neuromuscular condition   ✅ A near-fatal hospital mistake that could have changed everything     ✅ How they turned their personal struggles into Take Part Foundation, a nonprofit funding rare disease research     ✅ The power of storytelling, advocacy, and community for families navigating the unknown       Maria and Matt's story is one of resilience, innovation, and advocacy, proving that "rare is more common than you think." Whether you're a rare disease parent, medical professional, or someone looking for inspiration, this episode is a must-listen. Timestamps & Key Topics ⏱️ [00:00] – Episode Intro Welcome to today's episode featuring Maria & Matt Granados Why raising awareness for Pyroxd1 is so important ⏱️ [01:00] – Meet Maria & Matt Their family's journey: married 9 years, three kids, and an entrepreneurial spirit How flexibility in work became essential for parenting a child with complex medical needs ⏱️ [03:00] – The Start of Their Rare Disease Journey Pregnancy and early signs something was different with Natalie The challenges of getting doctors to take concerns seriously Being told “don't worry” for a year—while their instincts said otherwise ⏱️ [09:00] – The Thanksgiving Hospital Crisis That Changed Everything Natalie's sudden health decline and emergency hospitalization The shocking realization that hospitals don't share medical records effectively How a simple website they built saved Natalie's life by preventing a life-threatening medication error ⏱️ [13:00] – Turning Their Experience Into a Mission How their frustration with the system led them to found Take Part Foundation Why families need access to their child's full medical history The power of self-advocacy in rare disease care ⏱️ [24:00] – What Is Pyroxd1? Understanding This Rare Condition A breakdown of what Pyroxd1 is and how it affects the body The difficulty of finding a diagnosis and why many families go undiagnosed ⏱️ [30:00] – The Reality of Rare Disease Research & “Death Valley” Funding The shocking truth: 95% of rare diseases have no FDA-approved treatment Why promising research often stalls due to lack of funding How Take Part Foundation provides grants to researchers in need ⏱️ [38:00] – How Take Part Helps Families Get Genetic Testing Many families can't afford genetic testing—so Take Part is filling the gap The impact of a diagnosis on getting insurance coverage for therapies and equipment ⏱️ [44:00] – Strengthening Their Marriage Through the Rare Disease Journey The emotional toll of raising a medically complex child The mindset shift that saved their marriage: “If Natalie's not offended, I don't need to be offended.” The importance of seeing doctors as humans, too ⏱️ [50:00] – Let Your Fight Shine: A Message for Other Rare Parents Maria's beautiful perspective on embracing the fight instead of hiding it Why advocacy is the most powerful tool rare disease parents have ⏱️ [52:00] – Where to Find Maria & Matt + How to Support Take Part Foundation How to get involved, donate, or apply for support Why storytelling is a crucial part of the rare disease journey Final words of encouragement for other families Resources & Links

Give your feedback through our listener survey at https://justsleeppodcast.com/surveyOne random entry receives a Goodnight Tshirt and one year of Just Sleep Premium for free. Hosted on Acast. See acast.com/privacy for more information.