This Thing Called Life

Episode Title: One Voice for Life: Imam Hossam Musa on Faith, Service & Organ Donation Episode Description: In this episode of This Thing Called Life, we sit down with Imam Hossam Musa, spiritual leader at the Islamic Center of Greater Cincinnati, for a thoughtful conversation about faith, service, and community leadership. Imam Musa shares insight into the role of an Imam, the importance of interfaith collaboration, and how faith communities can come together with one voice to support life-saving education and compassionate decision-making around organ, tissue, and eye donation. The partnership with Network for Hope has helped dispel misinformation surrounding donations while allowing Imam Hossam Musa to provide spiritual guidance and comfort to individuals and families navigating these difficult moments. This conversation is a powerful reminder that compassion, education, and unity across faith traditions can help bring hope and healing to communities throughout Network for Hope and beyond. Episode Highlights Host Andi Johnson welcomes Imam Hossam Musa, spiritual leader of the Islamic Center of Greater Cincinnati, for a conversation centered on faith, service, and community impact. Imam Musa explains the role of an Imam, sharing that his responsibilities extend far beyond leading prayers to include officiating weddings, counseling families, visiting hospital patients, conducting funerals, resolving disputes, and serving as a spiritual guide for both Muslims and non-Muslims alike. He reflects on his journey into religious leadership, crediting his path to faith, family influence, and what he believes was God's plan for his life. Imam Musa shares how he memorized the Holy Quran at a young age and later pursued advanced studies in Islamic sciences while also earning a degree in computer science. He discusses how his original goal was simply to deepen his understanding of faith, but over time, his passion for serving others led him into full-time ministry. Andi highlights Imam Musa's partnership with Network for Hope, recognizing his efforts to educate the Muslim community about organ, tissue, and eye donation. Imam Musa explains the importance of replacing fear and misinformation with accurate education and compassionate dialogue grounded in Islamic teachings. He describes several educational programs developed in collaboration with Network for Hope, where community members were able to ask questions openly and better understand both the donation process and its religious considerations. The conversation emphasizes the importance of respecting cultural and religious values throughout the donation journey while ensuring families receive clear and trustworthy information. Imam Musa shares the Islamic perspective on death and the afterlife, explaining that conversations about death are encouraged within the faith because they inspire reflection, purpose, and preparation for life beyond this world. He notes that this openness can help individuals approach conversations around donation with greater understanding and acceptance. Andi and Imam Musa discuss the broader role faith leaders play in supporting communities—not only spiritually, but also socially and emotionally. Imam Musa speaks passionately about the importance of unity across communities and standing together against racism, injustice, poverty, homelessness, and other societal challenges. He highlights the shared responsibility of both faith and non-faith leaders to work collaboratively toward the well-being of the greater community. The conversation also touches on mental health support within the Islamic Center, where a team of professionals and community members help individuals navigate emotional and psychological challenges with compassion and care. The episode concludes with Andi expressing gratitude for Imam Musa's leadership, educational efforts, and commitment to bringing clarity, compassion, and hope to conversations surrounding organ donation. Key Takeaways Education Helps Replace Fear With Understanding Open, honest conversations grounded in compassion and accurate information can help dispel misconceptions surrounding organ donation across all communities. Faith and Service Go Hand in Hand Imam Musa's leadership demonstrates how faith communities can play a vital role in supporting individuals spiritually, emotionally, and practically during difficult moments. Unity Creates Stronger Communities Whether addressing organ donation, mental health, or social injustice, meaningful change happens when people work together with empathy, respect, and shared purpose. Tweetable Quotes “An Imam leads the Muslim community religiously. I serve as the Imam of the Islamic Center of Greater Cincinnati in West Chester, Ohio. We have a beautiful community and a beautiful mosque, which you have visited, and we've had the honor of hosting you and your fellow colleagues there many times, and we look forward to many more times in the future. “ Imam Hossam Musa “I visit patients in hospitals, I give talks on-site and off-site. I give sermons, give lectures, and answer people's many questions, whether they're Muslim or non-Muslim. People have questions about faith or seek advice, and I try to be accessible to everyone.” Imam Hossam Musa “I firmly believe that God Almighty planned my journey for me, and I'm incredibly grateful for that. I love what I do. I sincerely and deeply love what I do, and am humbled and honored to do so, and that doesn't tire me.” Imam Hossam Musa “Around 13 or so, I was blessed to complete the memorization of the entire Holy Quran by heart.” Imam Hossam Musa “There are millions of Muslims who have memorized the entire Holy Quran by heart, from cover to cover. That's approximately 600 pages of text, and many men and women who have memorized the Holy Quran at various ages, mostly youngsters who start early and memorize the Holy Quran somewhere in their mid-teens.” Imam Hossam Musa “God plans, and his plans are the best plans, so eventually, after some time, I became a full-time imam for about 15 years now.” Imam Hossam Musa “First of all, I'm honored to assist and contribute in any small way towards this greater goal of raising awareness and spreading beneficial and useful knowledge in place of assumptions and misconceptions.” Imam Hossam Musa “I felt that my community needed that same knowledge, and that's why we've done, I think, around four or more programs in collaboration with (Legacy) Life Center, which later became Network for Hope, to sit with our community members, present to them the religious perspective and the process, and then answer the many questions they have, and put their concerns at ease.” Imam Hossam Musa “We actually are recommended to talk more often about death, because it helps us rectify the areas in our lives that need to be rectified for us to be better prepared for the inevitable time of leaving this world, for us, when we meet our creator, that He's pleased with us.” Imam Hossam Musa “So I feel like you know there are a lot of aha moments, but overall I feel that this work needs to be spread and awareness needs to be broadly shared and raised because if we don't have a proper legal option for organ and tissue donations, then the improper and illegal options will thrive.” Imam Hossam Musa “Muslim I am also a human being, and myself and my Muslim community live as a part of a larger community and and we all must live happily and peacefully side by side, and matters that harm any part of us or any particular community or sub community, we all need to stand together as a matter of principle when it comes to combating any type of racism or supremacy or injustice, poverty, homelessness, whatever you may, we may be facing as challenges as a larger and greater society.” Imam Hossam Musa Resources: Donatelifeky.org https://getoffthelist.org/ https://www.networkforhope.org/ https://www.networkforhope.org/about-us/ https://www.networkforhope.org/stories-of-hope/ https://www.facebook.com/NetworkForHopeOPO https://www.youtube.com/@NetworkforHope. https://aopo.org/ RegisterMe.org/NetworkforHope

This episode of TTCL will feature a radio interview of Tom Daskalakis from TriHealth Clinton Regional Hospital with Brett Milam the Community Relations Associate for Network for Hope on Healthcare Chat with Tom. Resources: https://getoffthelist.org/ https://www.networkforhope.org/ https://www.networkforhope.org/about-us/ https://www.facebook.com/NetworkForHopeOPO https://aopo.org/ RegisterMe.org/NetworkforHope

EP 144: When Everything Changes Overnight: Corie Blount on Fighting for His Son, CJ Episode Description: On this episode of This Thing Called Life, former University of Cincinnati standout and 11-year NBA veteran Corie Blount shares a deeply personal story far beyond the game. His 25-year-old son, CJ, went from a simple headache and fatigue to a life-altering diagnosis: dangerously high blood pressure and severe kidney disease. With no family history, the news came out of nowhere. Now on dialysis, CJ is waiting for a life-saving kidney transplant as Corie and their family begin the emotional journey of seeing who might be a match. This conversation is about more than basketball, it's about fatherhood, resilience, and what it means to show up when everything shifts in an instant. Corie also reflects on life after the NBA—from co-hosting Legends Unplugged with Terry Nelson to his work on the Bob Huggins documentary. It's an honest, powerful look at how quickly life can change and the strength it takes to fight for the people you love.   Episode Highlights Host Andi Johnson welcomes former NBA player Corie Blount, whose connection to both the University of Cincinnati and the organ donation community brings depth and perspective to the conversation. Corie reflects on his basketball journey—from his time at the University of Cincinnati to an 11-year NBA career playing alongside legends like Michael Jordan, Kobe Bryant, Shaquille O'Neal, and Scottie Pippen. He shares his deep connection to Cincinnati, describing it as home and a place that continues to shape his life beyond basketball. The conversation shifts as Corie opens up about his son CJ's sudden health crisis, which began with what seemed like minor symptoms—headaches and fatigue—but quickly escalated. After being taken to the emergency room, CJ was diagnosed with extremely high blood pressure and severe kidney failure, leaving the family in shock. Corie candidly describes the emotional impact of the diagnosis and the steep learning curve his family faced in understanding kidney disease, dialysis, and transplant options. CJ is now undergoing dialysis treatments while awaiting a kidney transplant, and Corie shares how the family has rallied together to support him physically and emotionally. Despite the challenges, CJ continues to show strength, positivity, and resilience, even after graduating from the University of Cincinnati with a degree in business. Corie emphasizes the importance of being present as a family, recalling how loved ones stayed by CJ's side in the hospital to ensure he never felt alone. He shares his willingness to become a donor himself and speaks about the importance of maintaining a healthy lifestyle—both for donors and recipients. The episode highlights the importance of organ donation awareness, particularly the need for more people to consider living donation. Andi explains how simple it is to begin the donor testing process, often starting with a basic mouth swab. The conversation introduces the concept of paired kidney exchange, where donors who are not a direct match can still help save lives through a matching network. Corie expresses gratitude for organizations like Network for Hope, which help educate families and guide them through the transplant journey. Beyond his family's story, Corie shares updates on his life after basketball, including his podcast “Legends Unplugged” and involvement in the Bob Huggins documentary. The episode concludes with a powerful call to action—encouraging listeners to get informed, consider donation, and support families navigating similar challenges. Key Takeaways Health Crises Can Happen Without Warning CJ's story is a reminder that serious health conditions can develop unexpectedly, even without a known family history—making awareness and regular checkups essential. Support Systems Make All the Difference In moments of crisis, the presence of family, community, and trusted organizations provides strength, stability, and hope. Organ Donation Saves Lives—and Starts With Awareness From simple testing to paired exchanges, understanding the donation process can open doors to life-saving opportunities for those in need. Tweetable Quotes “I have an indebtedness of gratitude to the city and the university, and that's why I'm still here, and this is home now.” Corie Blount “ It's more of a learning curve for me, and then just trying to make sure that let him know he's loved and that we're supporting him. He's never alone. Whenever he was at the hospital, our whole family was there sleeping on the couches and on the floors and everything, just to show our support. We're supporting it now through this; it's just a learning curve.” Corie Blount “I appreciate what you guys did with the program, that you guys have to bring awareness to his situation, and it kind of educated me also.” Corie Blount “I never even knew you could live with one kidney, right when you met someone saying that they needed a kidney, like, 'Man, if I get my kidney up. How am I going to live? How is my life going to be moving forward?'  But the good thing that I've learned is that you have to treat your body right, no matter what.” Corie Blount “And it's important also to say that to be tested to be a living kidney donor, it's actually a very simple process, and it starts with a mouth swab. They send you a Q tip, it's a longer Q tip, and they do a mouth swab, and that's how the process starts.” Andi Johnson “It's hard for someone that you know, being of such a young age, you know, I think too, though it is helpful that he is young and doing the dialysis versus being older.” Corie Blount “Well, our hope and prayer is that you are the match, and if not, it's someone else in the family or but I would, I would not be surprised if there aren't people just knocking down the door to see if they would be a match for CJ.” Andi Johnson “Interesting fact about the living kidney donation process is that even if you're not a match for CJ, or if anyone else wants to be tested, and they're not a match for CJ, but they can still be a donor. Then there's this program. It's called the Paired Kidney exchange. So then you, for example, would donate to someone else that you were a match for, and then someone else who was a match for CJ would then donate for him.” Andi Johnson “Man, this is phenomenal that I don't know how we would have been able to deal with what we deal with. And fortunately, organizations like yourselves are stepping up and getting people to understand what's going on, and it's definitely needed.” Corie Blount Resources: Donatelifeky.org https://getoffthelist.org/ https://www.networkforhope.org/ https://www.networkforhope.org/about-us/ https://www.networkforhope.org/stories-of-hope/ https://www.facebook.com/NetworkForHopeOPO https://www.youtube.com/@NetworkforHope. https://aopo.org/ RegisterMe.org/NetworkforHope

This episode of TTCL will feature an interview with Luis Santiago from NFH on La Mega. This monthly interview will inform the Spanish Community about Network For Hope and the incredible miracles that happen with Organ, Tissue, and Eye Donation. Resources: https://getoffthelist.org/ https://www.networkforhope.org/ https://www.networkforhope.org/about-us/ https://www.facebook.com/NetworkForHopeOPO https://aopo.org/ RegisterMe.org/NetworkforHope

EP 142: Living Proof: How A Transplant at 7 months Sparked a Life of Impact     Episode Summary Haley Williamson's life began with a fight—and it turned into a mission. In this episode of This Thing Called Life, Haley shares her experience of receiving a liver transplant as an infant and how that second chance shaped her path. Now at 27 years old and working with Network for Hope, she connects with communities, spreading awareness and encouraging others through her story. This is a conversation about resilience, purpose, and making every day count. Episode Highlights Host Andi Johnson welcomes Haley Williamson, a liver transplant recipient whose journey began at just seven months old. Haley shares that she was diagnosed with biliary atresia shortly after birth, leading her family to quickly explore transplant options, including the possibility of her mother becoming a living donor. Although her mother was approved to donate, Haley ultimately received a liver from a deceased donor. She reflects on growing up post-transplant and how, despite taking daily medication, she has been able to live a largely healthy and active life. Andi and Haley discuss a common misconception—that transplant recipients immediately return to “normal”—while acknowledging that every journey is different and often includes ongoing challenges. Haley shares how her early medical experiences influenced her career path, leading her to roles in healthcare and eventually to Network for Hope, where she now works in community outreach and education. She opens up about the emotional challenges of body image, particularly growing up with a visible surgical scar, and how her mother supported her in building confidence and self-acceptance. Haley reflects on the maturity she developed over time, including navigating social situations—such as college environments—while making choices aligned with her health. She expresses deep gratitude for both her mother's willingness to donate and the selfless gift from her donor's family, recognizing the duality of loss and life in transplantation. During an internship, Haley had the opportunity to mentor patients awaiting transplants, offering encouragement and perspective from someone who has lived through the experience. Andi highlights Haley's gift for breaking down complex topics around organ donation, making them more approachable for individuals who may feel hesitant or unsure. Haley shares how education helps dispel fear, noting that many people become more open to donation once they truly understand the process. Beyond her advocacy work, Haley shares glimpses of her personal life—including her love for concerts (especially One Direction and Taylor Swift) and her recent interest in tennis and pickleball. The episode closes with Andi recognizing Haley as living proof of the impact of organ donation and celebrating her role in spreading hope and awareness. Key Takeaways A Second Chance Can Become a Life of Purpose Haley's journey shows that transplantation is not just about survival—it can inspire a life dedicated to helping and uplifting others. Education Reduces Fear and Builds Trust Many misconceptions about organ donation come from a lack of understanding. Honest conversations and real stories can change perspectives and encourage action. Resilience Is Built Over Time—With Support From navigating body image to making health-conscious decisions, Haley's story highlights the importance of family support, self-acceptance, and personal growth. Tweetable Quotes “I think it is really a testament to how much medicine has improved since then, because now we have a ton of transplant centers near us, so that's great.” Haley Williamson “I've been very fortunate. I've lived a very normal life. I honestly don't think about it most of the time, unless it comes up, and then I'm able to share my story with people. But I know that's not the norm for everyone, so I hope, if nothing else, I can be a voice of hope for people who are awaiting a transplant, or their child's going through something, that there is good on the horizon, and you can live a normal life after a transplant.” Haley Williamson “So, Child Life is a program that they have in hospitals for kids. Okay, it's to help improve morale, but also to help things not seem so scary. And other examples are like putting a baby doll through an MRI, so kids know what to expect. They see that their dolls are going through it, so it's not that scary. And so I'm like, I really like this. I enjoy being in this environment.” Haley Williamson “I love getting to really break down organ donation to people. I've experienced a lot of hesitancy from people just in my day-to-day life. And so it can be scary going in to talk to people and thinking they're automatically going to say, No, I'm not interested, right? But as soon as you explain things to people, they're like, Oh, this is like, I had no idea. This is what was really going on.” Haley Williamson “My scar did not say the same size it was when I was a baby. It has stretched with me. It goes all the way across my stomach, and it's been like, that'd be hard. Yes, it's been like that my whole life. So, especially like in elementary school, for sure, other kids don't understand, right?” Haley Williamson Resources: Donatelifeky.org https://getoffthelist.org/ https://www.networkforhope.org/ https://www.networkforhope.org/about-us/ https://www.networkforhope.org/stories-of-hope/ https://www.facebook.com/NetworkForHopeOPO https://www.youtube.com/@NetworkforHope. https://aopo.org/ RegisterMe.org/NetworkforHope

EP 141: Hope Springs Eternal this Donate Life Month   Episode Summary In this special episode of This Thing Called Life, host Andi Johnson shines a light on Donate Life Month, observed each April—a time dedicated to honoring organ, tissue, and eye donors, celebrating transplant recipients, and raising awareness about the life-saving power of donation. Andi reflects on the profound impact of donation—not just as a medical process, but as a deeply human act of generosity that gives others a second chance at life. From the courage of donor families to the renewed hope experienced by recipients, this episode highlights the stories and purpose behind the mission of Network for Hope. Listeners will also learn simple yet meaningful ways to get involved, from registering as a donor to starting conversations that can ultimately save lives. This episode is both a tribute and a call to action—reminding us that hope is real, and it begins with a single decision. Episode Highlights Host Andi Johnson introduces the significance of Donate Life Month, observed each April to honor organ, tissue, and eye donation and the lives impacted by it. She shares why this month holds deep meaning for Network for Hope, as it recognizes the extraordinary courage of donors and their families who make life-saving decisions during incredibly difficult times. The episode celebrates transplant recipients, highlighting how donation provides not just survival—but more time, more milestones, and an improved quality of life. Andi emphasizes that Donate Life Month is a powerful reminder that hope is made possible through generosity. She outlines several ways individuals can show support, including wearing blue and green, as a visible sign of awareness and solidarity. Listeners are encouraged to share personal stories—their own or those of loved ones—to help humanize the impact of donation and inspire others. Andi highlights opportunities to get involved through local events, flag-raising ceremonies, and online engagement to help spread awareness within communities. She underscores the importance of registering as an organ donor and, just as importantly, having open conversations with family members about that decision. The episode reinforces the idea that normalizing conversations around donation is key—because informed, shared decisions are stronger and more likely to be honored. Andi closes with a message of gratitude and purpose, honoring the legacies of donors while inspiring listeners to help build a future where no one has to wait for a second chance at life. Key Takeaways Donation Is a Powerful Legacy of Life Every donor creates a ripple effect—impacting not just one life, but entire families and communities through the gift of a second chance. Awareness Starts With Conversation Talking openly about organ donation with your family ensures your wishes are known and helps normalize a life-saving decision. Small Actions Can Make a Life-Saving Difference From registering as a donor to wearing blue and green or sharing a story, simple actions can raise awareness and inspire others to take part. Tweetable Quotes “For us at network for hope, this month is deeply meaningful. It's about celebrating the heroes, donors and their families who made courageous decisions during incredibly difficult moments. It's about recognizing transplant recipients whose second chance means more time, more milestones, and a better quality of life.” Andi Johnson “You can wear blue and green to show your support. You can share a story. You can attend a local event, participate in a flag raising ceremony, or engage with us online to help spread awareness. You can register as an organ donor and talk with your family about your decision. Most importantly, you can help normalize the conversation, because donation starts with a decision, and decisions are stronger when they're informed and shared.” Andi Johnson Resources: Donatelifeky.org https://getoffthelist.org/ https://www.networkforhope.org/ https://www.networkforhope.org/about-us/ https://www.networkforhope.org/stories-of-hope/ https://www.facebook.com/NetworkForHopeOPO https://www.youtube.com/@NetworkforHope. https://aopo.org/ RegisterMe.org/NetworkforHope

EP 140: "Strength in Every Generation: Orlando Brown Jr. on Family, Football, and Understanding Type 1 Diabetes"   Episode Summary Cincinnati Bengals Offensive Lineman Orlando Brown Jr. opens up about his family's powerful story of resilience and awareness in the face of Type 1 diabetes. After losing his father to diabetic ketoacidosis and supporting his brother through the same diagnosis, Orlando has turned his personal loss into a mission for generational health.  In this episode of This Thing Called Life, Orlando discusses how going through the process of genetic testing, prioritizing dietary choices, and educating his family on the disease has shaped their understanding of health—and why awareness, prevention, and advocacy matter for every family. Episode Highlights Host Andi Johnson welcomes Cincinnati Bengals offensive lineman Orlando Brown Jr. for a meaningful conversation about family, football, and health advocacy. Orlando shares his appreciation for being on the show and talks about continuing his journey with Cincinnati for two more seasons. He explains the story behind his signature fox tail, a tradition that began in college as a good luck charm and has since become part of his identity. Orlando reflects on his unique path to football, including how his father—former NFL player Orlando Brown Sr.—initially did not want him or his siblings to play sports because of the physical risks involved. He shares how, despite that hesitation, his love for football continued to grow, eventually leading him to begin playing in the eighth grade. Orlando talks about how his father later became one of his biggest supporters, helping him develop his game and encouraging his growth as an athlete. The conversation takes a deeper turn as Orlando opens up about his father's undiagnosed diabetes and the devastating impact it had on his family. He discusses how cultural beliefs, distrust of the medical system, and reliance on home remedies can sometimes delay diagnosis and treatment—especially in communities where medical mistrust has been passed down over time. Orlando also shares his family's experience with his brother's Type 1 diabetes diagnosis, and how that moment brought a new level of urgency and awareness to their lives. He emphasizes the importance of early detection, prevention, and education, especially for families who may be at greater risk. Orlando speaks candidly about the steps he now takes to protect his own health, including monitoring his body closely and making intentional lifestyle choices to avoid the same health challenges that affected his family. He shares how supporting his brother and others living with Type 1 diabetes deepened his understanding of the daily realities of the disease. Orlando highlights his advocacy work, including efforts to make insulin more affordable, raise awareness, and support research aimed at prevention and a cure. He discusses participating in preventive testing and trials, using his platform to encourage others to take action before health issues become crises. Orlando also opens up about the meaning behind several of his tattoos, including one honoring his father and another connected to his brother's diagnosis. He shares the story of one of his most meaningful tattoos—a portrait of his grandfather—and reflects on the powerful influence his grandfather had on his life and values. The episode also touches on Orlando's commitment to long-term wellness through nutrition. He explains why he hired a full-time nutritionist to help reduce inflammation, improve recovery, and better understand how food affects his body. He talks about preventative health practices, natural remedies, and the importance of using today's science and resources to avoid the chronic health issues many former athletes face later in life. Orlando closes by speaking about his role on the field, his love for protecting his quarterback, and the importance of being a consistent, vocal leader for his team. Key Takeaways Family health history matters more than many people realize. Orlando's story is a powerful reminder that understanding your family's medical history can help you make informed, life-saving decisions earlier. Awareness and early action can change outcomes. From genetic testing to prevention efforts, this episode underscores the importance of paying attention to warning signs and taking proactive steps before a health crisis occurs. Personal pain can become purposeful advocacy. Orlando has transformed his family's loss and challenges into a mission to educate others, support research, and use his platform to drive meaningful change. Tweetable Quotes “My football story is really unique. My so my dad played in the NFL for 13 years, and he didn't start playing till he was in 11th grade in high school, and his biggest thing for me and my siblings were he didn't want us playing sports.” Orlando Brown Jr. “I would always go to the practices. I kept up with it. So I've always had a real passion for the game of football, but he would not let me play. For him, football is a dark sport in a way, you know, and I've been fortunate in my path to get here, I was drafted, and I've had better opportunities than he did.” Orlando Brown Jr. “Southern black culture isn't, you know, the hospitals and doctors and medicine, it's more about remedies and, you know, things like that. That was my family. Distrust of the medical system.” Orlando Brown Jr. “ It's so important because, you know, as you said, experiencing it firsthand. You know, I always want to make sure that somebody can learn from my mistakes and or my family's mistakes. And that's so important. It's so important to be able to get ahead of it.” Orlando Brown Jr. “I've spent a lot of time, I feel like all over the US. I've gone to the Senate and talked about making insulin more affordable. I've gone to different children's Mercy hospitals across the US and work with them on finding a cure. I've completed the trial net, which is the preventive version of type one, just to make sure you don't have the antibodies.“ Orlando Brown Jr. “My nutritionist does this food test where she's able to tell you what food you can and can't eat that inflames your body.” Orlando Brown Jr.   Resources: Donatelifeky.org https://getoffthelist.org/ https://www.networkforhope.org/ https://www.networkforhope.org/about-us/ https://www.networkforhope.org/stories-of-hope/ https://www.facebook.com/NetworkForHopeOPO https://www.youtube.com/@NetworkforHope. https://aopo.org/ RegisterMe.org/NetworkforHope

This episode of TTCL will feature an interview with Luis Santiago from NFH on La Mega. This monthly interview will inform the Spanish Community about Network For Hope and the incredible miracles that happen with Organ, Tissue, and Eye Donation. Resources: https://getoffthelist.org/ https://www.networkforhope.org/ https://www.networkforhope.org/about-us/ https://www.facebook.com/NetworkForHopeOPO https://aopo.org/ RegisterMe.org/NetworkforHope

EP 138: "A Leap Of Faith, Chelsea's Altruistic Kidney Donation Journey"   Episode Summary Chelsea McNicholas, a Hospital Partnership Liaison with Network for Hope, joins This Thing Called Life to share how a social media post and her faith led her to become an altruistic kidney donor for a Child. Chelsea recounts starting the testing process after hearing about a friend's mother's need. Although she was not a match, it led her to another post about a child's need for a kidney, so she continued the testing. Ultimately, she was not needed because that child found a donor.  She walks us through her personal journey, the emotional and logistical realities of altruistic donation, and why community education about organ, tissue, and eye donation matters. Hear a personal, hopeful story that demystifies donation and inspires listeners to learn how they can help save lives. Episode Highlights Host Andi Johnson welcomes listeners and introduces guest Chelsea McNicholas, a dedicated advocate for organ donation and a valued member of the team at Network for Hope. Chelsea shares her professional background in healthcare and explains how becoming a mother helped inspire her decision to transition into her role with Network for Hope, where she could make a meaningful impact on the lives of others. As a Hospital Partnership Liaison, Chelsea explains that her work centers on building and maintaining strong relationships with hospital teams to ensure the organ donation process is handled with care, compassion, and efficiency. She describes the unique dual advocacy role she plays—supporting both hospital partners and the Network for Hope team throughout the donation process to ensure every step honors the donor and their family. Chelsea discusses her day-to-day responsibilities, which include hospital education, policy updates, compliance support, and continuous follow-up to strengthen collaboration between healthcare teams and the donation network. The conversation highlights how strong hospital partnerships are essential to ensuring successful donation outcomes and providing families with compassionate support during difficult moments. Chelsea shares some of the challenges of her role, particularly when unexpected issues arise within hospital systems. In those moments, creativity, adaptability, and problem-solving become essential. She praises the leadership at Network for Hope for fostering a supportive culture that empowers team members to think innovatively and find solutions that best serve donors, recipients, and healthcare partners. Andi and Chelsea reflect on the fulfillment that comes from working alongside passionate colleagues who are united by a shared mission to save and improve lives through donation. The conversation also addresses the scrutiny and misinformation that can sometimes surround organ donation. Chelsea emphasizes the importance of transparency, education, and trust in maintaining strong relationships with hospitals and the public. They discuss the important role donation ambassadors play in sharing personal stories that build understanding and confidence in the donation process. Chelsea then shares her deeply personal journey as a living donor. Before working in the field, she had little direct connection to organ donation until she began seeing social media posts from former classmates searching for kidney donors. Moved by their stories, Chelsea began exploring the possibility of becoming a donor herself. She describes the emotional and physical process of testing and waiting to see if she would be a match. Faith played a central role in her decision, along with the encouragement and support she received from her family. Chelsea recounts the powerful moment she met Reed, the young man who would ultimately receive her kidney, and learned more about the health challenges he and his family had faced due to kidney failure. She reflects on the emotional experience of donation surgery and the immediate bond formed between her and Reed's family. Chelsea also discusses the recovery process for both herself and Reed, highlighting the strength, faith, and support systems that carried them through the journey. Today, Chelsea continues to stay connected with Reed and his family, witnessing firsthand the life-changing impact of living donation. She shares how the experience has shaped conversations with her own children, teaching them the importance of compassion, generosity, and helping others whenever possible. The episode concludes with Andi expressing deep admiration for Chelsea's courage, compassion, and dedication to the mission of organ donation—recognizing her as both an advocate and a source of hope for many families. Key Takeaways Organ Donation Is Built on Trust and Relationships Strong partnerships between hospitals, donation organizations, and families are essential to ensuring the donation process is handled with compassion, integrity, and respect. One Person's Courage Can Transform Multiple Lives Chelsea's decision to become a living kidney donor demonstrates how a single act of generosity can profoundly impact not only a recipient but their entire family. Personal Stories Inspire Awareness and Action Sharing real experiences helps break through misinformation and encourages others to learn more about organ donation and consider how they might make a difference. Tweetable Quotes “We are the glue that holds the process together. I believe that our team is kind of a dual advocate in the donation process. “ Chelsea McNicholas “When things go awry at a hospital, that is challenging because the work is not flawless. The work is never done, if you will. So there are always challenges that arise. “ Chelsea McNicholas “I think it leans back into that strong relationship and strong trust. So knowing the truth right, like we know the truth right, and we have strong relationships with our hospitals to the point where they trust us. We've built that culture of trust and connection with our partners.”  Chelsea McNicholas “So I think again, a great opportunity for me to be an advocate and to educate people in my circle, my husband, and my entire family, was incredibly supportive.” Chelsea McNicholas “I think when I can look back on my life, faith was the foundation through every step and every decision, maybe in the moment, not as easy to see, but now looking back, I can absolutely identify that.” Chelsea McNicholas “It's really wild to think that a part of me is living on and someone else, and that most days I completely forgot I even did it, because I am right back to where I was, you know, five months ago, prior to the surgery.” Chelsea McNicholas Resources: Donatelifeky.org https://getoffthelist.org/ https://www.networkforhope.org/ https://www.networkforhope.org/about-us/ https://www.networkforhope.org/stories-of-hope/ https://www.facebook.com/NetworkForHopeOPO https://www.youtube.com/@NetworkforHope. https://aopo.org/ RegisterMe.org/NetworkforHope

EP 137: Reborn at 51: Jamie Mahaffey's Second Chance at Life   Episode Summary What does it mean to be reborn at 51?  In this powerful episode of This Thing Called Life, heart transplant recipient Jamie Mahaffey shares his extraordinary journey of survival, resilience, and purpose. After undergoing a heart transplant, the former athlete, coach, and Athletic Director at North College Hill City Schools discovered a renewed calling to lead with greater intention. Becoming a John Maxwell Coach inspired him to launch his own company focused on helping others achieve their goals and elevate their lives. Jamie's story is a masterclass in perseverance, perspective, and personal leadership—proof that you don't match the energy around you… You set the standard.      Episode Highlights Host Andi Johnson welcomes Jamie Mahaffey and invites him to share the health crisis that changed everything. On November 11, Jamie became lightheaded at work and was rushed to UC Hospital, where doctors discovered a serious infection in his LVAD (Left Ventricular Assist Device). Facing two life-altering options—replace the LVAD or undergo a heart transplant at Vanderbilt University—Jamie chose the transplant after prayer, reflection, and encouragement from trusted advisors. While driving to Vanderbilt on January 17, Jamie was shocked by his defibrillator 42 times, a harrowing moment that underscored the urgency of his condition. Within days of being upgraded to Status Level One on the transplant list, a donor heart became available. Surgery was scheduled for January 21. Jamie remained in a coma until January 24. When he awoke, he was reunited with his wife Robin and their children in an emotional and life-defining moment. Robin's meticulous advocacy and unwavering presence became a critical part of Jamie's survival and recovery. Jamie reflects on the deep gratitude he feels for his donor—and the profound awareness that his second chance came through another family's loss. A letter from the donor's mother became a pivotal moment, inspiring Jamie to move forward boldly in launching his leadership company. Post-transplant recovery included the unexpected amputation of his leg—an emotional and physical challenge Jamie describes as even harder than the transplant itself. Through faith, family support, and resilience, Jamie developed a renewed vision for his life centered on impact and purpose. He shares his journey to becoming a certified John Maxwell Coach and his vision of speaking, writing, and helping others live beyond their potential. Jamie emphasizes living with integrity, leading intentionally, and choosing purpose over comfort. Key Takeaways Adversity Clarifies Purpose Life-threatening challenges often strip away distractions and reveal what truly matters. Jamie's second chance forced him to reevaluate his priorities and commit fully to purposeful leadership. Leadership Starts With Personal Responsibility You don't match the energy around you—you set the standard. Jamie's story demonstrates that leadership is not about position, but about the example you choose to live daily. Gratitude Changes Everything Understanding that his new heart came at a great cost reshaped Jamie's perspective. Gratitude became fuel for impact, reminding him to live in a way that honors both the gift and the giver. Tweetable Quotes “So I had two weeks of tests. Everything you can imagine. You know dentists, too. That's another thing, if you don't take care of your teeth, that's an affection of your heart. So those appointments are important, something that I didn't do regularly.” Jamie Mahaffey  “My defibrillator shocked me 42 times. And so the cardiologist came down, and he was like, Okay, we have to admit him. And so that's when I stayed there. And on January 18, the doctor came in that morning, and he said, You go from level three to level one a. Level one is where you need a transplant. “ Jamie Mahaffey  “I was in a coma for five days because my heart wasn't initiating with my body.” Jamie Mahaffey  “God was giving me another opportunity to listen to him. It was a time. I mean, I was just always busy. I was a head coach and won state titles and played college ball and played overseas, and I was always moving, but I was always looking after other people as a man. We are fathers, and we take care of our house, and I was an ad, and I was a coach, I was a mentor, so I'm looking after everybody else but myself. And it was a time he was saying, it's your turn.” Jamie Mahaffey  “I know there's a purpose for me to just keep having people to not live off their potential, but pursue their destiny. And so that's why I teach a lot of kids. A lot of people are still in life, living off potential but not pursuing their destiny. “ Jamie Mahaffey  “Maxwell certification was a stepping stone to a vision. I always heard about myself, about being a motivational speaker, about writing books, about having normal eyesight in life.” Jamie Mahaffey  Resources: Donatelifeky.org https://getoffthelist.org/ https://www.networkforhope.org/ https://www.networkforhope.org/about-us/ https://www.networkforhope.org/stories-of-hope/ https://www.facebook.com/NetworkForHopeOPO https://www.youtube.com/@NetworkforHope. https://aopo.org/ RegisterMe.org/NetworkforHope

This episode of TTCL will feature an interview with Luis Santiago from NFH on La Mega. This monthly interview will inform the Spanish Community about Network For Hope and the incredible miracles that happen with Organ, Tissue, and Eye Donation. Resources: https://getoffthelist.org/ https://www.networkforhope.org/ https://www.networkforhope.org/about-us/ https://www.facebook.com/NetworkForHopeOPO https://aopo.org/ RegisterMe.org/NetworkforHope

This episode of TTCL will feature an interview with Luis Santiago from NFH on La Mega. This monthly interview will inform the Spanish Community about Network For Hope and the incredible miracles that happen with Organ, Tissue, and Eye Donation. Resources: https://getoffthelist.org/ https://www.networkforhope.org/ https://www.networkforhope.org/about-us/ https://www.facebook.com/NetworkForHopeOPO https://aopo.org/ RegisterMe.org/NetworkforHope

EP 134 Title:  Honoring the Gift of Life: Erica Randall's Journey with Network for Hope and Organ Donation   Episode Summary In this heartfelt episode, Erica Randall, Community Partnership and Events Manager at Network for Hope, shares her inspiring journey in building stronger communities and advocating for organ donation. Erica opens up about her role within the organization, highlighting the rewarding experience of organizing the annual Network for Hope Community Breakfast. But the conversation takes a deeply personal turn as Erica reflects on her family's connection to organ donation, including the passing of her cousin Jason, who became an organ donor after a tragic car accident, and her mother-in-law Gail, who gave the gift of sight through cornea donation. Erica also discusses the creation of the SODA (Student Organ Donation Advocates) chapter in Cincinnati, which has now grown to 7-8 thriving chapters, and her deep passion for honoring both donors and recipients. Tune in to hear about Erica's mission to spread awareness, inspire others, and make a lasting impact on the lives of those touched by organ donation.  Episode Highlights Erica Randall discusses her role at Network for Hope as the Community Partnerships and Events Manager, where she builds bridges between communities and the life-saving mission of donation. They recently held their annual breakfast event, themed “Voices of Hope,” where speakers reflected on the joy, resilience, and positivity of children and young adults impacted by donation. The event was visually brought to life through participants' paintings surrounding the word hope, creating a powerful representation of lived experiences. Andi and Erica highlight Keegan, a young boy waiting for a lung transplant whose optimism and enthusiasm inspired everyone in the room. Erica shared the story of Jaylynn, a cornea recipient who is now thriving as a high-school senior, illustrating how donation restores independence and possibility. Erica has spent nine years in the OPO field and is deeply committed to educating communities about how the donation process truly works. Erica shares how the loss of her cousin Jason, who became an organ donor after a fatal car accident at 23, introduced her to the world of donation. She reflects on more than a decade of donation support services, building meaningful relationships with donor families during their most vulnerable moments. Erica explains why specific medical questions are asked during tissue donation, emphasizing safety, ethics, and protection for recipients. Erica's mother-in-law Gail was diagnosed with liver cancer yet still became a cornea donor at age 66, restoring sight to two people in Saudi Arabia. Gail's story highlights the importance of educating the public that certain donations are still possible—even with active cancer diagnoses. Erica shares her work with the Student Organ Donation Advocates (SODA) chapter in Ohio, where over 550 students registered as donors. She emphasizes how today's teenagers are setting a powerful standard for social impact and advocacy. Andi thanks Erica for her transparency, leadership, and dedication to sharing knowledge that empowers informed decisions about donation. Key Takeaways Education dispels fear. Accurate, compassionate education helps families and communities understand donation and make informed decisions rooted in truth—not misinformation. Hope has many voices. From children waiting for transplants to recipients thriving years later, each story demonstrates the ripple effect of donation. Legacy lives on through giving. Personal loss, like Erica's experience with her cousin Jason, can transform grief into purpose and lifelong advocacy. Tweetable Quotes “​​So our theme is voices of hope. And we did feature children and young adults. And I liked that idea because I wanted to show people it's not just adults who go through this. It does impact, you know, children at birth, or it does impact children very young age.” - Erica Randall   “So Jalen scratched her cornea when she was two years old and had to receive a cornea transplant. She is now a senior in high school in cosmetology. I'm so proud of her, and she is a signed professional Fisher woman. Oh, my God, and to see her just thrive all because of a cornea transplant, and how her life, I mean, she could be 17 years old with no eye, or she could have no vision.” - Erical Randall   “At 23 years old, he (Jason, Erica's cousin)  became a superhero, and he was able to donate his heart, his liver, his kidneys, and he was a tissue donor. So that completely flipped our lives upside down, but introduced me to a world of donation I had no clue even existed.” - Erica Randall   “I think it's an honor to give them the chance to have that light that somebody gave me when Jason became a donor. It gave us some positivity to his death. It gave us some glimpse of hope, some light in our lives, and to give that, to pass that on to somebody else, to have that chance was a great privilege.” - Erica Randall   “She (Gail, Erica's Mother-in-Law) became a cornea donor at the age of 66 in her corneas, or in Saudi Arabia. So two people in Saudi Arabia have the gift of sight because of her. So, again, great moment here to educate people that can be cornea donors and have active cancer.” - Erica Randall   Resources: Donatelifeky.org https://getoffthelist.org/ https://www.networkforhope.org/ https://www.networkforhope.org/about-us/ https://www.networkforhope.org/stories-of-hope/ https://www.facebook.com/NetworkForHopeOPO https://www.youtube.com/@NetworkforHope. https://aopo.org/ RegisterMe.org/NetworkforHope

Title:  EP 133:  “Walking by Faith: Maria's Story of Survival and Purpose”

This episode of TTCL will feature an interview with Luis Santiago from NFH on La Mega. This monthly interview will inform the Spanish Community about Network For Hope and the incredible miracles that happen with Organ, Tissue, and Eye Donation. Resources: https://getoffthelist.org/ https://www.networkforhope.org/ https://www.networkforhope.org/about-us/ https://www.facebook.com/NetworkForHopeOPO https://aopo.org/ RegisterMe.org/NetworkforHope

Title:  EP 131:  “Three Hearts, One Journey:  The Massie Family's Journey with Alport Syndrome”   

Title:  “The Ripple Effect: Maggie Luken's Journey of Loss, Love, and Life”  

This episode of TTCL will feature an interview with Luis Santiago from NFH on La Mega. This monthly interview will inform the Spanish Community about Network For Hope and the incredible miracles that happen with Organ, Tissue, and Eye Donation. Resources: https://getoffthelist.org/ https://www.networkforhope.org/ https://www.networkforhope.org/about-us/ https://www.facebook.com/NetworkForHopeOPO https://aopo.org/ RegisterMe.org/NetworkforHope

Title:  "Meeting My Kidney Sister: Sarah Green-Moore's Story of Healing and Purpose"    

Title: "Legacy in Life and Loss: Adria Johnson on Her Son's Gift of Hope"  

Title: Twice Gifted: Beth Otto's Journey As a  2 Time Kidney Recipient  

This episode of TTCL will feature an interview with Luis Santiago from NFH on La Mega. This monthly interview will inform the Spanish Community about Network For Hope and the incredible miracles that happen with Organ, Tissue, and Eye Donation. Resources: https://getoffthelist.org/ https://www.networkforhope.org/ https://www.networkforhope.org/about-us/ https://www.facebook.com/NetworkForHopeOPO https://aopo.org/ RegisterMe.org/NetworkforHope

Title: One Family, Three Transplant Journeys: Life with Alport Syndrome  

"Full Circle: Interview with Markeyah Lewis on Life, Lupus, and the Gift of a Kidney"   Markeyah Lewis was diagnosed with Lupus, leading to early kidney failure. When her mother wasn't a direct transplant match, they turned to Advanced Kidney Donation—a life-changing decision that helped Markeyah receive her transplant in 2022. Now a mother and soon-to-be Doctor of Occupational Therapy, Markeyah shares her powerful story of resilience, motherhood, and the miracle of second chances.   ✨ Episode Highlights Andi introduces Markeyah Lewis and invites her to reflect on how they first met four years ago, during her battle with lupus. Markeyah shares her inspiring story of resilience and hope amid life-altering circumstances. She describes undergoing hemodialysis during her senior year of college. Her mother, although not a direct donor match, was determined to help. Markeyah explains how Advanced Kidney Donation allowed her mother to donate to another person—making Markeyah a priority on the transplant list. In 2022, her mother donated a kidney to a stranger named Charlie, with whom they still keep in touch. Andi and Markeyah discuss the importance of honoring the gift of life after a transplant. Markeyah offers heartfelt advice for those battling chronic illness, emphasizing the importance of a strong support system. They explore the role of faith in navigating health struggles and finding purpose. Markeyah shares her deep gratitude for her mother's selfless act. She opens up about her pregnancy journey, which was unexpectedly smooth despite the risks associated with lupus and kidney disease. Markeyah also details her mother's donation journey and her current health. She expresses thanks to their medical team and looks forward to becoming an occupational therapist. The episode concludes with Markeyah reflecting on her first Mother's Day.

This episode of TTCL will feature an interview with Luis Santiago from NFH on La Mega. This monthly interview will inform the Spanish Community about Network For Hope and the incredible miracles that happen with Organ, Tissue, and Eye Donation. Resources: https://getoffthelist.org/ https://www.networkforhope.org/ https://www.networkforhope.org/about-us/ https://www.facebook.com/NetworkForHopeOPO https://aopo.org/ RegisterMe.org/NetworkforHope

Title: "The Gift of Life: A Conversation with Dr. Alex Ancheta, Transplant Surgeon"  

This episode of TTCL will feature an interview with Luis Santiago from NFH on La Mega. This monthly interview will inform the Spanish Community about Network For Hope and the incredible miracles that happen with Organ, Tissue, and Eye Donation. Resources: https://getoffthelist.org/ https://www.networkforhope.org/ https://www.networkforhope.org/about-us/ https://www.facebook.com/NetworkForHopeOPO https://aopo.org/ RegisterMe.org/NetworkforHope

Title: "Bridging the Gap: The Power of Organ Donation in Kentucky"  

This episode of TTCL will feature an interview with Luis Santiago on La Mega. This monthly interview will inform the Spanish Community about Network For Hope and the incredible miracles that happen with Organ, Tissue, and Eye Donation. Resources: https://getoffthelist.org/ https://www.networkforhope.org/ https://www.networkforhope.org/about-us/ https://www.facebook.com/NetworkForHopeOPO https://aopo.org/

Episode Summary In this heartfelt episode, we sit down with Gretchen Starnes, Family Aftercare Manager with Network for Hope (Louisville), an organization that also supports families after the loss of a loved one through organ donation. Gretchen shares the deeply human side of her work—walking with families through the grief process, offering comfort, connection, and compassion in the wake of profound loss. We explore how the gift of life through donation can bring a measure of hope to unimaginable sorrow, and how Gretchen and her team help families navigate that journey with care and grace. ✨ Episode Highlights Gretchen Starnes discusses her role as a Family Aftercare Manager at Network for Hope. She describes the Aftercare Department's mission to support donor families and ensure their needs are met with compassion and understanding. Gretchen shares her personal journey, beginning as a Family Support Worker and transitioning to Aftercare, highlighting the critical role of empathy in her work. She reflects on working with grief and the full spectrum of emotions that come with it, reminding us: “There's nothing wrong with you when you're grieving.” Andi asks Gretchen about the myths and misconceptions surrounding grief and bereavement support. Gretchen explains that support systems often fade after the first year of loss and shares her experience that, for many, the second year is even harder. The organization offers 15 months of ongoing support through mailings, in-person meetings, and online resources. Families find healing and comfort in sharing stories, memories, and legacies of their loved ones. Donor families play a vital role in encouraging and supporting newly bereaved families through direct connections. Gretchen talks about the emotional challenges donor families face when reaching out to donor recipients and how the organization offers guidance through that process. They reflect on the powerful impact of the Holiday Honor Walk, which brings donor families together to foster connection, support, and healing. Gretchen emphasizes the importance of saving lives through organ donation and the value of being surrounded by a strong, supportive community. She also highlights the importance of self-care, a healthy team environment, and emotional support to navigate the difficulties inherent in this deeply meaningful work.

Episode Summary In this powerful episode, we sit down with Jon and Felicia Rohman to share the remarkable journey of their daughter Hadlee, who underwent a life-saving heart transplant in 2020—right amid a global pandemic. What began as a terrifying health issue became a testimony of faith, resilience, and appreciation for the incredible gift of life. Years later, Hadlee is thriving, healthy, joyful, and full of gratitude. Join us as Andi Johnson interviews the Rohmans, who open up about their challenges, the community that rallied around them, and the beautiful, beating heart of their daughter's second chance at life.   ✨ Episode Highlights Andi Johnson welcomes Jon and Felicia Rohman, a husband-and-wife team and proud parents of four. The conversation centers around Hadlee, their third child, who was born with hypoplastic left heart syndrome. Felicia recounts Hadlee's birth in 2017 and the significant right-sided heart failure she experienced by late 2019, which made organ donation the only viable option. Jon discusses the mental and emotional preparation required as they faced the reality of a potential heart transplant. The couple acted quickly, getting Hadlee placed on the transplant list in January 2020. She received her new heart on May 28, 2020—coincidentally, their son's birthday. Jon reflects on the emotional toll of the process, including a failed donation and navigating the challenges brought on by the COVID-19 pandemic. Felicia shares the complexity of maintaining infection control while managing the needs of their other children. During this time, Jon resigned from his job to be with Hadlee full-time at the hospital. Jon honors Felicia's strength as she worked two jobs—80 hours a week—while homeschooling and caring for their children at home amid the pandemic. Today, Hadlee is flourishing with a new baby sister and enjoys activities such as swimming, soccer, and dancing. The Rohmans express deep gratitude to the donor family, highlighting the life-changing impact of the transplant. Felicia reflects on how their faith sustained them through hardship and the emotional conversations they had with their children. The couple emphasizes the vital importance of organ donation and the hope it brings to families in need. Jon encourages other families to lean into their communities and be open to receiving help. They also speak to the power of social media in spreading Hadlee's story and building a network of support. The Rohmans express appreciation for organizations such as Donate Life and Network For Hope for amplifying their journey and giving them a platform to share.

Episode Summary In this inspiring episode, Zach Wells a TV sports anchor shares his incredible journey of receiving a kidney donation from his brother. Zach opens up about the unexpected news that his kidney was failing and the challenges he faced battling kidney disease, and the profound lessons he learned about hope, resilience, and the importance of prioritizing health. Tune in as Zach offers a raw and honest conversation about overcoming adversity and the power of family, health, and seizing the moment.     Episode Highlights Zach Wells was diagnosed with kidney disease in 2007 and experienced a gradual decline in kidney function before receiving a transplant in 2018. He recalls the moment he first learned something was wrong—his wife left him a message from a business trip, urging him to check his test results after his doctor raised concerns about his creatinine levels. Determined to manage his condition, Zach relied on diet, exercise, and medication but ultimately knew that a transplant was the best path forward. Before his diagnosis, Zach was a self-proclaimed workaholic, often neglecting his health in favor of his career. He later realized that without prioritizing his well-being, his time was limited. He reflects on the physical toll of kidney disease—the fatigue, nausea, and other symptoms—while balancing parenthood and work responsibilities. Throughout his journey, Zach found unwavering support from his wife, Caroline, and his family, which made all the difference. His brother turned out to be a perfect donor match, bringing renewed hope and gratitude. Zach discusses the emotional and physical impact of his illness, the dedication of his medical team, and the perspective he gained through this experience. Inspired by Zach's story, Andi sheds light on the kidney transplant crisis and the need for greater awareness about living donors. Prospective donors undergo rigorous screening, but their generosity can transform the lives of over 100,000 people currently on the transplant waitlist. When asked for advice to men facing kidney disease or dialysis, Zach encourages them to stay present, be patient, and stay committed to their medical care and fitness routines. He highlights the importance of hope, scientific advancements, and the skilled professionals who make transplants possible. Zach expresses deep gratitude for his transplant surgeon, doctors, and everyone who played a role in his recovery.   Key Takeaways Zach's journey with kidney disease began in 2007, leading to a transplant in 2018. His initial reluctance to seek medical care due to work commitments taught him a valuable lesson about balance and self-care. The support of his family, medical team, and a generous kidney donation from his brother gave him a second chance at life. He now finds joy in the little things and is committed to raising awareness about kidney disease and transplantation. Tweetable Quotes:   “So about managing the disease, doing everything I could to be as healthy as I could, drink as much water as I could, have the best diet that I possibly could, knowing that probably the chances of this reversing, the chances of this having a better outcome, were not going to be a very high so it's a long road.” - Zach Wells “I think transplants really reward the patient. They reward the dutiful, they reward the optimistic.” - Zach Wells “I was a workaholic. All I thought about was work. And I thought that I can't deal with this or go to the doctor, because that's going to interfere with my work schedule. But I learned very quickly that if I didn't get balance and prioritize this as another full-time job, that I wasn't going to be around very long.” - Zach Wells “I was not feeling well at all. I was run down. I had like, bags under my eyes. I would randomly sweat, I felt nauseous.” - Zach Wells “I think that that's one of the many areas where I've been so lucky, is just having an incredible support network of people that have really helped me. That's amazing.” - Zach Wells “What I want to do is, like, really draw attention to the fact that this is an incredibly solvable problem. Yes, like the people that are waiting, like, the waiting list is over 100,000.” - Zach Wells Resources: https://getoffthelist.org/ https://www.networkforhope.org/ https://www.networkforhope.org/about-us/ https://www.facebook.com/NetworkForHopeOPO https://www.youtube.com/@NetworkforHope. https://aopo.org/

Episode Summary In this episode of This Thing Called Life, Andi Johnson interviews Means Cameron, a successful entrepreneur from Cincinnati and the founder of the clothing brand BlaCkOWned™ Outerwear. Means shares the inspiration behind launching BlaCkOWned™ Outerwear in 2011, influenced by his cultural experiences and the importance of representation. He discusses the significance of community ownership, legacy, and his personal connection to organ donation. Cameron highlights the impact of organ donors on his friends' lives, including a fraternity brother who received a kidney transplant. He also addresses common misconceptions about organ donation within the Black community, emphasizing the need for education, trust, and personal storytelling to make the topic more relatable. The discussion underscores the power of local narratives in raising awareness about organ donation and encourages open conversations within families and communities. Episode Highlights Origins of BlaCkOWned™ Outerwear: Means Cameron shares how the brand was born out of his desire to embrace identity, cultural heritage, and community pride. Meaning Behind the Brand Name: "BlaCkOWned™ wasn't just about a Black-owned business—it was about owning who we are as a people, our culture." Legacy and Impact: Means expresses his vision for his legacy: "Fostering Black creativity and dialogue, and showing people they have options." Connection to Organ Donation: Means discusses his personal experiences with organ donation, including friends and family members who have received transplants. He highlights the challenges of mistrust and misinformation about organ donation in the Black community. Addressing Misconceptions: Many individuals fear that becoming an organ donor could put their lives at risk in medical settings. In reality, only 1% of registered organ donors pass in a way that allows for organ donation, while thousands remain on transplant waiting lists. The Importance of Storytelling: Means emphasizes the need to humanize the organ donation process by sharing real-life experiences to build trust and awareness. Encouraging Open Dialogue: Andi asks Means how he would approach someone hesitant about organ donation. Means stresses the importance of respecting different perspectives while sharing personal experiences to help others make informed decisions. Final Reflections: Andi expresses gratitude for the meaningful discussion and appreciates Means' insights on business, legacy, and organ donation advocacy.   Key Takeaways: Means Cameron's journey as an entrepreneur reflects his deep commitment to identity, community, and legacy.  His personal experiences with organ donation have fueled his advocacy for increasing awareness and addressing misconceptions. Andi and Means then dig deeper into educating ourselves and others about how organ donation can help address mistrust and save lives and the importance of humanizing the organ donation process by sharing personal stories and the faces who make it more relatable and trustworthy. Tweetable Quotes:   “Cincinnati needed something for the culture, something that spoke to our culture, to give us something to be proud about, to speak about our heritage, and for not to just be in private rooms, but for us to be able to take it out into the world. “ - Means Cameron “So the idea of BlaCkOWned™ came out of me, wanting to have ownership of who I am and never losing it.” - Means Cameron “And so BlaCkOWned™ wasn't just about a black-owned business. It was about owning who we are as a people, our culture and the name black owned, just came to me. “ - Means Cameron “One of the most challenging things in our community is that we believe that if we become organ donors, that someone is going to take our organs if we ever are sick or in a doctor's bed and our life is on the line.” - Means Cameron “ I guess the best thing I can do for anyone that is on the fence is just to share with them my own experiences. “ - Means Cameron Resources: https://getoffthelist.org/ https://www.networkforhope.org/ https://www.networkforhope.org/about-us/ https://www.facebook.com/NetworkForHopeOPO https://www.youtube.com/@NetworkforHope. https://aopo.org/

This episode of TTCL will feature an interview with Luis Santiago on La Mega. This monthly interview will inform the Spanish Community about Network For Hope and the incredible miracles that happen with Organ, Tissue, and Eye Donation. Resources: https://getoffthelist.org/ https://www.networkforhope.org/ https://www.networkforhope.org/about-us/ https://www.facebook.com/NetworkForHopeOPO https://aopo.org/

In this episode of This Thing Called Life, Andi Johnson sits down with Joel Chase, Vice President of Organ Services at Network for Hope, to discuss his role and how it has evolved following a recent merger. Joel shares insights into the integration of two smaller Organ Procurement Organizations (OPOs) into Network for Hope, the strategic changes that followed, and how he is leading a growing team. Joel walks through the organ donation process, from the initial referral to organ recovery, emphasizing the importance of supporting donor families, transplant recipients, and OPO staff who navigate these complex and life-changing moments. He also reflects on his career journey, the challenges of balancing leadership with personal life, and the impact of medical advancements on the field of organ donation.   Episode Highlights: Joel's Role & the Organ Donation Process: He oversees the entire donation process, from organ referral and evaluation to allocation and recovery. Navigating Growth Post-Merger: The transition from 32 full-time employees at Legacy Life Center to over 90 at Network for Hope has required new leadership strategies. Evolving Case Timelines: The duration of cases has expanded from 24 to over 50 hours, depending on testing and logistical challenges. What Drives Joel: He is motivated by mission-driven work, helping people, and witnessing his team's success. Biggest Leadership Challenge: Time management in an organization that never stops and balancing work with family life. Leadership Philosophy: Leading with openness, support, and grace while prioritizing an inclusive leadership style. Memorable Moments: Joel shares a powerful story of how a leader's critical decision helped save three lives, a defining learning experience in his career. Public Awareness: He encourages open conversations about organ donation with loved ones and addresses concerns from those hesitant to register. Key Takeaways: Leadership in Organ Donation: Joel shares insights into leading a non-profit OPO, managing growth, and the importance of learning through challenges ("failing forward"). The Organ Donation Process: Understanding how OPOs evaluate, allocate, and recover organs while collaborating with hospitals to ensure successful transplants. Encouraging Public Awareness: Addressing misconceptions about organ donation and why open conversations with family are essential. Tweetable Quotes:   “I've always been fascinated with medicine, so you get to kind of play nurse or doctor without necessarily having to have the license. So I thought that that was just a great, intriguing career.” - Joel Chase “We are there to help facilitate, to make donation happen in the best way possible, and in these 24 hour shifts that a lot of the team members are working and all the things that they're doing, it's very hard to expect perfection when a lot of staff want to do their best all the time, and it's just not possible. We're all humans, and we have to have some grace for each other too.” - Joel Chase “I think that we should learn from our experiences, whether they're good or bad. If we don't learn from them, then I think that's more of a failure. Otherwise, it's an opportunity to improve and do better the next time. So I definitely like that mindset, and it kind of ties into knowing that we're not perfect people, and I don't think we're ever going to have a perfect A to Z case” - Joel Chase “It's the OPOs job to evaluate the patient's medical record and their current clinical condition for organ donation potential. A lot of times that could mean that the patient ends up surviving their injury, and they go through the rehabilitation process” - Joel Chase Resources: https://getoffthelist.org/ https://www.networkforhope.org/ https://www.networkforhope.org/about-us/ https://www.facebook.com/NetworkForHopeOPO https://www.youtube.com/@NetworkforHope. https://aopo.org/

This episode of TTCL will feature an interview with Julie Luebbers on La Mega. This monthly interview will inform the Spanish Community about Network For Hope and the incredible miracles that happen with Organ, Tissue, and Eye Donation. Resources: https://getoffthelist.org/ https://www.networkforhope.org/ https://www.networkforhope.org/about-us/ https://www.facebook.com/NetworkForHopeOPO https://aopo.org/

Community Heroes is a special extension of This Thing Called Life's podcast. In this series, we talk to community leaders, share important information about organ and tissue donation, and honor those who have been instrumental in saving lives through the gift of donation.  In this episode, we talk with Lincoln Ware from WDBZ the Buzz of Cincinnati talk station. Resources https://registerme.org/ https://getoffthelist.org/ https://www.networkforhope.org/ https://www.networkforhope.org/about-us/ https://www.facebook.com/NetworkForHopeOPO https://www.youtube.com/@NetworkforHope. https://aopo.org/

Community Heroes is a special extension of This Thing Called Life's podcast. In this series, we talk to community leaders, share important information about organ and tissue donation, and honor those who have been instrumental in saving lives through the gift of donation.  In this episode, we talk with Don Juan from 100.3 FM Cincy's R&B station in Cincinnati. Resources https://registerme.org/ https://getoffthelist.org/ https://www.networkforhope.org/ https://www.networkforhope.org/about-us/ https://www.facebook.com/NetworkForHopeOPO https://www.youtube.com/@NetworkforHope. https://aopo.org/

Episode 106: The Donation Coordinator's Responsibility within the Donation Process of the Organ Procurement Organization, with Christienne King   During this episode of This Thing Called Life, host Andi Johnson talks about the donation process from the OPO (Organ Procurement Organization) lens. This week, Andi is speaking with Christenne King. She is the Senior Donation Coordinator. She meets family in very difficult times. Tune in to hear about her experiences as it relates to the important process of organ donation.  Episode Highlights:  Many people believe that organ, eye, and tissue donation is just a service of the hospital but Andi shares how it is much bigger than that and requires the collaboration of many. Christenne has been with the Life Center for over 20 years and is currently the Senior Donation Coordinator. She explains her role as one of the individuals who handles the evaluation, medical management, organ placement, and logistics of the operating room for an organ donation. Andi asks Christenne to share what kind of training and background is required to do work as she does. Christenne shares her personal experience with organ donation about her sister, Adrienne King who had epilepsy and cerebral palsy. What does brain dead mean? Christenne shares facts that listeners may not be aware of. She explains the difference between that and a vegetative state or coma. Organ donation and the education around it have grown significantly over the years.  Christenne explains her connection to Network For Hope and how meaningful it has been to her on several levels. Christenne put herself to paramedic school and applied as an organ coordinator. Andi asks Christenne how she prepares for her day and meeting with families in desperate times.  What happens at the bedside to evaluate potential organ donation? Christenne shares that some cases have changed her forever and how it has been a blessing. What goes into supporting the families who are in contact with them? Andi talks about how COVID-19 caused many people to reflect and seek more meaningful jobs. Andi asks Christenne to share what a typical workday looks like for a donation coordinator.  Logistics and time frames are very important in the process; Christenne explains. A lot of communication is required for this job because of the many pieces that must come together. An average case lasts about 72 hours so that the right thing is accomplished with the donor. Christenne talks about when organ gifts are placed in other locations. The donation coordinators are very passionate about giving each individual the best preservation options. Have you thought about registering to be a donor? Find out more at https://lifepassiton.org/ 3 Key Points Christenne shares her personal experience with organ donation when her sister, Adrienne King passed away and saved several other lives. Organ donation happens through the collaboration of many. Andi and Christenne talk through the organ coordinator role and the piece it is in the overall process. Emotional taxation is high in the role that Christenne has. She talks about the challenges, and blessings, and how she perseveres through them.    Tweetable Quotes: “Organ, eye, and tissue donation does not happen without collaboration.” -Andi “There are intricacies of this life-giving, life-saving process.” -Andi “When someone has been deemed as potential to help someone through donation, a donation coordinator will be onsite for 24 hours/day through the end of the process.” -Christenne “For those who do not know, when a person is declared brain dead, it is a legal pronouncement of death, it is the time that will go on their death certificate.” -Christenne “My sister was one of only 39 organ donors in Cincinnati in 1992. It was so rare.” -Christenne “Donation can have such a  positive effect on those that are donor families. “ -Christenne “This role requires you to be strong and sensitive to the fact that a family is going through the worst possible time.” -Andi “We are intimately involved with the families in the room and with the donors in the room, it is difficult.” -Christenne “Other than being a parent, this job is the most rewarding thing I will do in my life.” -Christenne Resources Mentioned: https://getoffthelist.org/ https://www.networkforhope.org/ https://www.networkforhope.org/about-us/ https://www.facebook.com/NetworkForHopeOPO

LifeCenter ahora es Network For Hope! (LifeCenter now is Network For Hope!) This episode of TTCL will feature an interview with Julie Luebbers on La Mega. This monthly interview will inform the Spanish Community about Network For Hope and the incredible miracles that happen with Organ, Eye, and Tissue Donation. Resources: https://getoffthelist.org/ https://www.networkforhope.org/ https://www.networkforhope.org/about-us/ https://www.facebook.com/NetworkForHopeOPO https://aopo.org/

A Transplant Surgeon's Journey To Help Others, with Dr Madison Cuffy During this episode of This Thing Called Life podcast, host Andi Johnson speaks with Dr. Madison Cuffy, an Associate Professor at UC Health. Dr. Cuffy has built trust-filled relationships with his transplant patients throughout the years and loves nothing more than to see them live their lives to the fullest after getting their transplant.   Episode Highlights:  Dr. Cuffy started his medical journey back in 2002 which led to a multi-organ  transplant fellowship at New York Presbyterian. Growing up in Brooklyn, Dr. Cuffy was first introduced to Cincinnati by Talib Kweli and Hi Tek. As a 14-year-old, Dr. Cuffy became interested in medicine while volunteering in a hospital cleaning instruments. Even to this day, no one in Dr. Cuffy's family has experience in medicine, nor any clue what a transplant surgeon does. Dr. Cuffy was born in the Caribbean and grew up with his great aunt in New York. One of the most common misconceptions surrounding organ donation is that the medical community will let you die. After being in transplant and seeing how one can help create life during a time of despair, Dr. Cuffy became an organ donor. The medical community is not out to harm organ donors in order to harvest their organs, contrary to popular belief. According to the statistics, on average, 22 people die every day waiting on an organ transplant. While most of his focus is on kidney transplants, Dr. Cuffy does work with all transplant organs. There is an access problem for people who need a kidney transplant and are on dialysis. Dr. Cuffy facilitates living kidney donation as the best option to treat end-stage renal disease. Andi has noticed that people of color tend to shy away from sharing their donation needs with other people. Socioeconomic issues and disadvantages can make it more difficult for certain patients to share their stories. People who don't want to share their stories need a donor champion to do it for them. There are different forms of literacy, so Dr. Cuffy makes sure his patients know that there is no stupid question. It's important for patients to speak up about their questions to their doctor so that they don't get misinformation from another source. If your physician is too busy to answer your questions now or in the future, you may need to find a different provider. Dr. Cuffy feels rewarded by his job when he sees his patients experiencing life after their transplant. His grandmother's advice was “Always be yourself”, even when things get tough, this message helps Dr Cuffy get through hard days. Raised without his parents in Brooklyn, Dr. Cuffy knows first hand that you can do anything you set your mind to. Dr. Cuffy has always had an extra gear that has allowed him to outwork everyone around him. When he goes back to Brooklyn now, Dr. Cuffy gets a different kind of respect from the people he grew up with. Dr. Cuffy thoroughly enjoys going to J. Alexanders in Cincinnati because of the sheer amount of professional African Americans that go there. 3 Key Points: While volunteering at a hospital with the hopes of staying off the streets as a 15-year-old boy, Dr. Cuffy had the opportunity to watch a kidney transplant up close, and that's how he chose the transplant route. Unlike in other cities that have multiple transplant programs with different surgeons, Cincinnati has a single transplant program where the doctors act as one unit. Living donor kidneys last anywhere from 15 to 20 years, recipients don't have to wait on a list to get one, and the quality is usually very good. Resources: https://www.networkforhope.org/ https://www.networkforhope.org/about-us/ https://www.facebook.com/NetworkForHopeOPO https://getoffthelist.org/ https://www.uchealth.com/en/transplant Dr Madison Cuffy  

Community Heroes is a special extension of This Thing Called Life's podcast. In this series, we talk to community leaders, share important information about organ, eye and tissue donation, and honor those who have been instrumental in saving lives through the gift of donation.  In this episode, we talk with Don Juan from 100.3 FM Cincy's R&B station in Cincinnati. Resources https://getoffthelist.org/ https://www.networkforhope.org/ https://www.networkforhope.org/about-us/ https://www.facebook.com/NetworkForHopeOPO

Community Heroes is a special extension of This Thing Called Life's podcast. In this series, we talk to community leaders, share important information about organ and tissue donation, and honor those who have been instrumental in saving lives through the gift of donation.  In this episode, we talk with Don Juan from 100.3 FM Cincy's R&B station in Cincinnati.   Resources https://getoffthelist.org/ https://www.networkforhope.org/ https://www.networkforhope.org/about-us/ https://www.facebook.com/NetworkForHopeOPO https://www.youtube.com/@NetworkforHope. https://aopo.org/

Welcome to today's episode of This Thing Called Life, where we delve into the ever-evolving care plan of organ, eye, and tissue donation. In this episode, we're joined by Andi Johnson and Dr. Jordan Bonomo to explore a key recommendation from the 2021 National Academies of Sciences, Engineering, and Medicine (NASEM) report aimed at transforming organ donation and transplantation practices to create a more equitable system. Dr. Bonomo shares insights into a groundbreaking initiative—the establishment of a donor care unit within UCMC's new Flex ICU. This innovative, first-of-its-kind model is designed to improve organ donation outcomes by providing comprehensive, compassionate care to both donors and their families. Tune in for this important conversation on enhancing the donor experience and advancing the future of organ donation.   Episode Highlights: Introducing Dr. Jordan Bonomo. He is a physician at the University of Cincinnati Medical Center. He's the Medical Director of the flex ICU and a professor of Emergency Medicine, neurology, neurosurgery, and neurocritical care. He is also the attending physician for anesthesia, critical care, and ECMO, and he's the medical director for donor management, for Network For Hope, formerly Life Center.  Dr. Bonomo explains the long-term development of the Flex ICU, emphasizing its multifaceted purpose to serve critically ill patients and enhance organ donation capacity. The Flex ICU aims to provide specialized care for organ donors, improving the yield and survival rate of donated organs. Specialized units can focus on the needs of the donor from a physiological standpoint and the needs of the family from an emotional standpoint. This aims to provide a much more synchronized environment and holistic care for the families and adhere to the donor wishes. All the staff are fully trained and they're vetted and vested at the same time in the process of donation.  The purpose is to have the best donor care unit available anywhere in the country. The unit is staffed 24/7 by dedicated teams to support the mission of Network for Hope. The unit is limited to donors who have been declared dead by neurologic criteria. Note that in the month of October, the first month of the launch of Flex ICU, there were zero patients declared brain dead in the region. Dr. Bonomo explains the intentional design of the unit to accommodate donor families, offering them the option to be with their loved ones or to step back as needed. The Flex ICU aims to respect the wishes of donors and families, facilitating their involvement in the donation process. Dr. Bonomo discusses the potential impact of the Flex ICU on organ donation The goal is to optimize the process for donors, families, and organ recipients, balancing the need for timely transplantation with the potential for increased donation. Andi adds that the DCU, which is housed within the flex ICU, has been discussed as a key part of the flex ICU with providers, nurses, and physicians who will be working in this unit. The team is committed to doing right by donors, recognizing the privilege and obligation that comes with their role. The Flex ICU has attracted dedicated professionals who are passionate about improving organ donation and transplantation. The process of establishing the unit has been lengthy, involving multiple stakeholders and legal considerations.  He shares that this is an organ procurement organization initiative that really is somewhat independent of the healthcare system. The belief that donation can bring healing and good from tragedy has been a driving force for Dr. Bonomo.  Dr. Bonomo has a strong foundation in bioethics, having earned his undergraduate degree in the field. Throughout his career, organ donation has been a central focus of his work in biomedical ethics. Dr. Bonomo invites listeners to ask questions and seek education about the organ donation process. The importance of accurate information and understanding the process is important for effective collaboration and support. 3 Key Points:   Dr. Bonomo explains the long-term development of the Flex ICU, emphasizing its multifaceted purpose to serve critically ill patients and enhance organ donation capacity. The Flex ICU aims to provide specialized care for organ donors, improving the yield and survival rate of donated organs. The unit is limited to donors who have been declared dead by neurologic criteria. So brain dead donors, and brain dead vernacular term death by neurologic criteria. Dr. Bonomo explains the intentional design of the unit to accommodate donor families, offering them the option to be with their loved ones or to step back as needed. The Flex ICU has attracted dedicated professionals who are passionate about improving organ donation and transplantation. The team is committed to doing right by donors, recognizing the privilege and obligation that comes with their role.   Tweetable Quotes: “Dr shutter explained to me that we do our best to save them, but when you can't, your obligation doesn't end, and the opportunity to donate is an absolute good when done well…” - Dr. Bonomo “So the the flex ICU has been in design and development for a really long time, I mean, north of 15 years, and we've had fits and starts, and we finally were able to construct it…” - Dr. Bonomo “We have teams that are dedicated to supporting the mission and network for hope, formerly Life Center…” - Dr. Bonomo “I think every family is interested in knowing that their loved one is well cared for and that their wishes are being respected.” - Dr. Bonomo Resources: https://getoffthelist.org/ https://www.networkforhope.org/ https://www.networkforhope.org/about-us/ https://www.facebook.com/NetworkForHopeOPO https://www.youtube.com/@NetworkforHope. https://aopo.org/

Community Heroes is a special extension of This Thing Called Life's podcast. In this series, we talk to community leaders, share important information about organ and tissue donation, and honor those who have been instrumental in saving lives through the gift of donation.  In this episode, we talk with Lincoln Ware from WDBZ the Buzz of Cincinnati talk station.   Resources: https://getoffthelist.org/ https://www.networkforhope.org/ https://www.networkforhope.org/about-us/ https://www.facebook.com/NetworkForHopeOPO https://www.youtube.com/@NetworkforHope. https://aopo.org/

Community Heroes is a special extension of This Thing Called Life's podcast. In this series, we talk to community leaders, share important information about Organ, Tissue, and Eye donation, and honor those who have been instrumental in saving lives through the gift of donation.   Resources: https://getoffthelist.org/ https://www.networkforhope.org/ https://www.networkforhope.org/about-us/ https://www.facebook.com/NetworkForHopeOPO https://www.youtube.com/@NetworkforHope. https://aopo.org/

Welcome to today's episode of This Thing Called Life, where we explore the evolving landscape of organ, tissue, and eye donation. Join us as we chat with Andi Johnson, featuring Jennie Wright, a double lung transplant recipient, and her daughter, Siri Imanin.  Jennie, diagnosed with sarcoidosis and pulmonary hypertension, waited a year to be listed for a transplant and another two years to receive the lungs. She recounts the challenges, including antibiotic-resistant infections and the emotional toll on her family. Siri shares how her mother's journey influenced her music and activism, emphasizing the importance of organ donation education in the Black community. They discuss the need for proactive health awareness and the impact of supportive networks on their recovery.   Episode Highlights: Andi Johnson introduces the mother-daughter duo Jennie Wright and Siri Imani, and asks Jennie to share her transplant journey Jennie shared that she had sarcoidosis, and as a result, her lungs were severely damaged, which caused pulmonary hypertension. So before the donation, she had a backpack that had oxygen and a fanny pack that had a heart pump. It took a year to get Jennie listed and two years before she got her transplant Jennie recounts the emotional and physical challenges, including contracting antibiotic-resistant infections and the decision to postpone the transplant due to her condition. Andi asks about the support journey for both mother and daughter Siri, Jennie's daughter answers that she was happy once everything was settled because she recalls the long period where her mother's life felt limited and the journey they had to go through in organ donation. Andi asks Siri, who is an artist, creator, activist, & cultivator, how the journey influences her music and the work that she does from a creative standpoint. Siri answers that it influenced everything and that she grabs inspiration from her mother and grandmother in every way. Siri shares that when they first got the diagnosis, she documented and made music about it. Andi asks Siri to share her favorite memory with her grandmother Andi asks what they would like to share with others, particularly in the black community, after just living through this experience. Siri shares her personal journey of overcoming misinformation and distrust, emphasizing the need for education and awareness. Andi questions what they would like to say to their donor family. Jennie expresses her deep gratitude to the donor family for their selflessness and the opportunity to continue living. Jennie and Siri discuss the activities and experiences they can now enjoy, such as walking and attending events. 3 Key Points: Jennie shared that she had sarcoidosis, and as a result, her lungs were severely damaged, which caused pulmonary hypertension. So before the donation, she had a backpack that had oxygen and a fanny pack that had a heart pump. It took a year to get Jennie listed and two years before she got her transplant because there were certain conditions to be met for her to get the transplant. Siri, Jennie's daughter recalls the long period where her mother's life felt limited and the journey they had to go through in organ donation. Siri is also an artist, creator, activist, & cultivator, and she found inspiration in her mother's journey. Siri shares her personal journey of overcoming misinformation and distrust, emphasizing the need for education and awareness. The conversation touches on the historical context of distrust in the medical system within the Black community and the importance of updating that narrative. Tweetable Quotes: “...with that waiting process, the stars have to be perfectly aligned, because you have to be, to be at the top of the list, you got to be the sickest of the sick, right? But you can't be too sick.” - Andi Johnson “My faith helped to sustain me, and I feel like God showed me a moment on the other side of this. And I just kind of held on to that.” - Jennie Wright “I think a lot of our work with people experiencing homelessness just came from the understanding early that life could take you anywhere, no matter what type of person you are, no matter where you come from, you can place where you just need people.” - Siri Imani “I was always planning on making sure, like, people knew who my mama was, people knew who my grandma was, and really remember because they made it clear who they were in their lifetimes.” - Siri Imani Resources: https://getoffthelist.org/ https://lifepassiton.org/ https://lifepassiton.org/board-of-directors-leadership/ https://www.facebook.com/LifeCenterOH https://www.youtube.com/user/LifeCenterOH https://aopo.org/

LifeCenter ahora es Network For Hope! (LifeCenter now is Network For Hope!) This episode of TTCL will feature an interview with Julie Luebbers on La Mega. This monthly interview will inform the Spanish Community about Network For Hope and the incredible miracles that happen with Organ, Eye, and Tissue Donation. Resources: https://getoffthelist.org/ https://www.networkforhope.org/ https://www.networkforhope.org/about-us/ https://www.facebook.com/NetworkForHopeOPO https://aopo.org/