This Thing Called Life

This episode of TTCL will feature an interview with Luis Santiago on La Mega. This monthly interview will inform the Spanish Community about Network For Hope and the incredible miracles that happen with Organ, Tissue, and Eye Donation. Resources: https://getoffthelist.org/ https://www.networkforhope.org/ https://www.networkforhope.org/about-us/ https://www.facebook.com/NetworkForHopeOPO https://aopo.org/

Episode Summary In this heartfelt episode, we sit down with Gretchen Starnes, Family Aftercare Manager with Network for Hope (Louisville), an organization that also supports families after the loss of a loved one through organ donation. Gretchen shares the deeply human side of her work—walking with families through the grief process, offering comfort, connection, and compassion in the wake of profound loss. We explore how the gift of life through donation can bring a measure of hope to unimaginable sorrow, and how Gretchen and her team help families navigate that journey with care and grace. ✨ Episode Highlights Gretchen Starnes discusses her role as a Family Aftercare Manager at Network for Hope. She describes the Aftercare Department's mission to support donor families and ensure their needs are met with compassion and understanding. Gretchen shares her personal journey, beginning as a Family Support Worker and transitioning to Aftercare, highlighting the critical role of empathy in her work. She reflects on working with grief and the full spectrum of emotions that come with it, reminding us: “There's nothing wrong with you when you're grieving.” Andi asks Gretchen about the myths and misconceptions surrounding grief and bereavement support. Gretchen explains that support systems often fade after the first year of loss and shares her experience that, for many, the second year is even harder. The organization offers 15 months of ongoing support through mailings, in-person meetings, and online resources. Families find healing and comfort in sharing stories, memories, and legacies of their loved ones. Donor families play a vital role in encouraging and supporting newly bereaved families through direct connections. Gretchen talks about the emotional challenges donor families face when reaching out to donor recipients and how the organization offers guidance through that process. They reflect on the powerful impact of the Holiday Honor Walk, which brings donor families together to foster connection, support, and healing. Gretchen emphasizes the importance of saving lives through organ donation and the value of being surrounded by a strong, supportive community. She also highlights the importance of self-care, a healthy team environment, and emotional support to navigate the difficulties inherent in this deeply meaningful work.

Episode Summary In this powerful episode, we sit down with Jon and Felicia Rohman to share the remarkable journey of their daughter Hadlee, who underwent a life-saving heart transplant in 2020—right amid a global pandemic. What began as a terrifying health issue became a testimony of faith, resilience, and appreciation for the incredible gift of life. Years later, Hadlee is thriving, healthy, joyful, and full of gratitude. Join us as Andi Johnson interviews the Rohmans, who open up about their challenges, the community that rallied around them, and the beautiful, beating heart of their daughter's second chance at life.   ✨ Episode Highlights Andi Johnson welcomes Jon and Felicia Rohman, a husband-and-wife team and proud parents of four. The conversation centers around Hadlee, their third child, who was born with hypoplastic left heart syndrome. Felicia recounts Hadlee's birth in 2017 and the significant right-sided heart failure she experienced by late 2019, which made organ donation the only viable option. Jon discusses the mental and emotional preparation required as they faced the reality of a potential heart transplant. The couple acted quickly, getting Hadlee placed on the transplant list in January 2020. She received her new heart on May 28, 2020—coincidentally, their son's birthday. Jon reflects on the emotional toll of the process, including a failed donation and navigating the challenges brought on by the COVID-19 pandemic. Felicia shares the complexity of maintaining infection control while managing the needs of their other children. During this time, Jon resigned from his job to be with Hadlee full-time at the hospital. Jon honors Felicia's strength as she worked two jobs—80 hours a week—while homeschooling and caring for their children at home amid the pandemic. Today, Hadlee is flourishing with a new baby sister and enjoys activities such as swimming, soccer, and dancing. The Rohmans express deep gratitude to the donor family, highlighting the life-changing impact of the transplant. Felicia reflects on how their faith sustained them through hardship and the emotional conversations they had with their children. The couple emphasizes the vital importance of organ donation and the hope it brings to families in need. Jon encourages other families to lean into their communities and be open to receiving help. They also speak to the power of social media in spreading Hadlee's story and building a network of support. The Rohmans express appreciation for organizations such as Donate Life and Network For Hope for amplifying their journey and giving them a platform to share.

Episode Summary In this inspiring episode, Zach Wells a TV sports anchor shares his incredible journey of receiving a kidney donation from his brother. Zach opens up about the unexpected news that his kidney was failing and the challenges he faced battling kidney disease, and the profound lessons he learned about hope, resilience, and the importance of prioritizing health. Tune in as Zach offers a raw and honest conversation about overcoming adversity and the power of family, health, and seizing the moment.     Episode Highlights Zach Wells was diagnosed with kidney disease in 2007 and experienced a gradual decline in kidney function before receiving a transplant in 2018. He recalls the moment he first learned something was wrong—his wife left him a message from a business trip, urging him to check his test results after his doctor raised concerns about his creatinine levels. Determined to manage his condition, Zach relied on diet, exercise, and medication but ultimately knew that a transplant was the best path forward. Before his diagnosis, Zach was a self-proclaimed workaholic, often neglecting his health in favor of his career. He later realized that without prioritizing his well-being, his time was limited. He reflects on the physical toll of kidney disease—the fatigue, nausea, and other symptoms—while balancing parenthood and work responsibilities. Throughout his journey, Zach found unwavering support from his wife, Caroline, and his family, which made all the difference. His brother turned out to be a perfect donor match, bringing renewed hope and gratitude. Zach discusses the emotional and physical impact of his illness, the dedication of his medical team, and the perspective he gained through this experience. Inspired by Zach's story, Andi sheds light on the kidney transplant crisis and the need for greater awareness about living donors. Prospective donors undergo rigorous screening, but their generosity can transform the lives of over 100,000 people currently on the transplant waitlist. When asked for advice to men facing kidney disease or dialysis, Zach encourages them to stay present, be patient, and stay committed to their medical care and fitness routines. He highlights the importance of hope, scientific advancements, and the skilled professionals who make transplants possible. Zach expresses deep gratitude for his transplant surgeon, doctors, and everyone who played a role in his recovery.   Key Takeaways Zach's journey with kidney disease began in 2007, leading to a transplant in 2018. His initial reluctance to seek medical care due to work commitments taught him a valuable lesson about balance and self-care. The support of his family, medical team, and a generous kidney donation from his brother gave him a second chance at life. He now finds joy in the little things and is committed to raising awareness about kidney disease and transplantation. Tweetable Quotes:   “So about managing the disease, doing everything I could to be as healthy as I could, drink as much water as I could, have the best diet that I possibly could, knowing that probably the chances of this reversing, the chances of this having a better outcome, were not going to be a very high so it's a long road.” - Zach Wells “I think transplants really reward the patient. They reward the dutiful, they reward the optimistic.” - Zach Wells “I was a workaholic. All I thought about was work. And I thought that I can't deal with this or go to the doctor, because that's going to interfere with my work schedule. But I learned very quickly that if I didn't get balance and prioritize this as another full-time job, that I wasn't going to be around very long.” - Zach Wells “I was not feeling well at all. I was run down. I had like, bags under my eyes. I would randomly sweat, I felt nauseous.” - Zach Wells “I think that that's one of the many areas where I've been so lucky, is just having an incredible support network of people that have really helped me. That's amazing.” - Zach Wells “What I want to do is, like, really draw attention to the fact that this is an incredibly solvable problem. Yes, like the people that are waiting, like, the waiting list is over 100,000.” - Zach Wells Resources: https://getoffthelist.org/ https://www.networkforhope.org/ https://www.networkforhope.org/about-us/ https://www.facebook.com/NetworkForHopeOPO https://www.youtube.com/@NetworkforHope. https://aopo.org/

Episode Summary In this episode of This Thing Called Life, Andi Johnson interviews Means Cameron, a successful entrepreneur from Cincinnati and the founder of the clothing brand BlaCkOWned™ Outerwear. Means shares the inspiration behind launching BlaCkOWned™ Outerwear in 2011, influenced by his cultural experiences and the importance of representation. He discusses the significance of community ownership, legacy, and his personal connection to organ donation. Cameron highlights the impact of organ donors on his friends' lives, including a fraternity brother who received a kidney transplant. He also addresses common misconceptions about organ donation within the Black community, emphasizing the need for education, trust, and personal storytelling to make the topic more relatable. The discussion underscores the power of local narratives in raising awareness about organ donation and encourages open conversations within families and communities. Episode Highlights Origins of BlaCkOWned™ Outerwear: Means Cameron shares how the brand was born out of his desire to embrace identity, cultural heritage, and community pride. Meaning Behind the Brand Name: "BlaCkOWned™ wasn't just about a Black-owned business—it was about owning who we are as a people, our culture." Legacy and Impact: Means expresses his vision for his legacy: "Fostering Black creativity and dialogue, and showing people they have options." Connection to Organ Donation: Means discusses his personal experiences with organ donation, including friends and family members who have received transplants. He highlights the challenges of mistrust and misinformation about organ donation in the Black community. Addressing Misconceptions: Many individuals fear that becoming an organ donor could put their lives at risk in medical settings. In reality, only 1% of registered organ donors pass in a way that allows for organ donation, while thousands remain on transplant waiting lists. The Importance of Storytelling: Means emphasizes the need to humanize the organ donation process by sharing real-life experiences to build trust and awareness. Encouraging Open Dialogue: Andi asks Means how he would approach someone hesitant about organ donation. Means stresses the importance of respecting different perspectives while sharing personal experiences to help others make informed decisions. Final Reflections: Andi expresses gratitude for the meaningful discussion and appreciates Means' insights on business, legacy, and organ donation advocacy.   Key Takeaways: Means Cameron's journey as an entrepreneur reflects his deep commitment to identity, community, and legacy.  His personal experiences with organ donation have fueled his advocacy for increasing awareness and addressing misconceptions. Andi and Means then dig deeper into educating ourselves and others about how organ donation can help address mistrust and save lives and the importance of humanizing the organ donation process by sharing personal stories and the faces who make it more relatable and trustworthy. Tweetable Quotes:   “Cincinnati needed something for the culture, something that spoke to our culture, to give us something to be proud about, to speak about our heritage, and for not to just be in private rooms, but for us to be able to take it out into the world. “ - Means Cameron “So the idea of BlaCkOWned™ came out of me, wanting to have ownership of who I am and never losing it.” - Means Cameron “And so BlaCkOWned™ wasn't just about a black-owned business. It was about owning who we are as a people, our culture and the name black owned, just came to me. “ - Means Cameron “One of the most challenging things in our community is that we believe that if we become organ donors, that someone is going to take our organs if we ever are sick or in a doctor's bed and our life is on the line.” - Means Cameron “ I guess the best thing I can do for anyone that is on the fence is just to share with them my own experiences. “ - Means Cameron Resources: https://getoffthelist.org/ https://www.networkforhope.org/ https://www.networkforhope.org/about-us/ https://www.facebook.com/NetworkForHopeOPO https://www.youtube.com/@NetworkforHope. https://aopo.org/

This episode of TTCL will feature an interview with Luis Santiago on La Mega. This monthly interview will inform the Spanish Community about Network For Hope and the incredible miracles that happen with Organ, Tissue, and Eye Donation. Resources: https://getoffthelist.org/ https://www.networkforhope.org/ https://www.networkforhope.org/about-us/ https://www.facebook.com/NetworkForHopeOPO https://aopo.org/

In this episode of This Thing Called Life, Andi Johnson sits down with Joel Chase, Vice President of Organ Services at Network for Hope, to discuss his role and how it has evolved following a recent merger. Joel shares insights into the integration of two smaller Organ Procurement Organizations (OPOs) into Network for Hope, the strategic changes that followed, and how he is leading a growing team. Joel walks through the organ donation process, from the initial referral to organ recovery, emphasizing the importance of supporting donor families, transplant recipients, and OPO staff who navigate these complex and life-changing moments. He also reflects on his career journey, the challenges of balancing leadership with personal life, and the impact of medical advancements on the field of organ donation.   Episode Highlights: Joel's Role & the Organ Donation Process: He oversees the entire donation process, from organ referral and evaluation to allocation and recovery. Navigating Growth Post-Merger: The transition from 32 full-time employees at Legacy Life Center to over 90 at Network for Hope has required new leadership strategies. Evolving Case Timelines: The duration of cases has expanded from 24 to over 50 hours, depending on testing and logistical challenges. What Drives Joel: He is motivated by mission-driven work, helping people, and witnessing his team's success. Biggest Leadership Challenge: Time management in an organization that never stops and balancing work with family life. Leadership Philosophy: Leading with openness, support, and grace while prioritizing an inclusive leadership style. Memorable Moments: Joel shares a powerful story of how a leader's critical decision helped save three lives, a defining learning experience in his career. Public Awareness: He encourages open conversations about organ donation with loved ones and addresses concerns from those hesitant to register. Key Takeaways: Leadership in Organ Donation: Joel shares insights into leading a non-profit OPO, managing growth, and the importance of learning through challenges ("failing forward"). The Organ Donation Process: Understanding how OPOs evaluate, allocate, and recover organs while collaborating with hospitals to ensure successful transplants. Encouraging Public Awareness: Addressing misconceptions about organ donation and why open conversations with family are essential. Tweetable Quotes:   “I've always been fascinated with medicine, so you get to kind of play nurse or doctor without necessarily having to have the license. So I thought that that was just a great, intriguing career.” - Joel Chase “We are there to help facilitate, to make donation happen in the best way possible, and in these 24 hour shifts that a lot of the team members are working and all the things that they're doing, it's very hard to expect perfection when a lot of staff want to do their best all the time, and it's just not possible. We're all humans, and we have to have some grace for each other too.” - Joel Chase “I think that we should learn from our experiences, whether they're good or bad. If we don't learn from them, then I think that's more of a failure. Otherwise, it's an opportunity to improve and do better the next time. So I definitely like that mindset, and it kind of ties into knowing that we're not perfect people, and I don't think we're ever going to have a perfect A to Z case” - Joel Chase “It's the OPOs job to evaluate the patient's medical record and their current clinical condition for organ donation potential. A lot of times that could mean that the patient ends up surviving their injury, and they go through the rehabilitation process” - Joel Chase Resources: https://getoffthelist.org/ https://www.networkforhope.org/ https://www.networkforhope.org/about-us/ https://www.facebook.com/NetworkForHopeOPO https://www.youtube.com/@NetworkforHope. https://aopo.org/

This episode of TTCL will feature an interview with Julie Luebbers on La Mega. This monthly interview will inform the Spanish Community about Network For Hope and the incredible miracles that happen with Organ, Tissue, and Eye Donation. Resources: https://getoffthelist.org/ https://www.networkforhope.org/ https://www.networkforhope.org/about-us/ https://www.facebook.com/NetworkForHopeOPO https://aopo.org/

Community Heroes is a special extension of This Thing Called Life's podcast. In this series, we talk to community leaders, share important information about organ and tissue donation, and honor those who have been instrumental in saving lives through the gift of donation.  In this episode, we talk with Lincoln Ware from WDBZ the Buzz of Cincinnati talk station. Resources https://registerme.org/ https://getoffthelist.org/ https://www.networkforhope.org/ https://www.networkforhope.org/about-us/ https://www.facebook.com/NetworkForHopeOPO https://www.youtube.com/@NetworkforHope. https://aopo.org/

Community Heroes is a special extension of This Thing Called Life's podcast. In this series, we talk to community leaders, share important information about organ and tissue donation, and honor those who have been instrumental in saving lives through the gift of donation.  In this episode, we talk with Don Juan from 100.3 FM Cincy's R&B station in Cincinnati. Resources https://registerme.org/ https://getoffthelist.org/ https://www.networkforhope.org/ https://www.networkforhope.org/about-us/ https://www.facebook.com/NetworkForHopeOPO https://www.youtube.com/@NetworkforHope. https://aopo.org/

Episode 106: The Donation Coordinator's Responsibility within the Donation Process of the Organ Procurement Organization, with Christienne King   During this episode of This Thing Called Life, host Andi Johnson talks about the donation process from the OPO (Organ Procurement Organization) lens. This week, Andi is speaking with Christenne King. She is the Senior Donation Coordinator. She meets family in very difficult times. Tune in to hear about her experiences as it relates to the important process of organ donation.  Episode Highlights:  Many people believe that organ, eye, and tissue donation is just a service of the hospital but Andi shares how it is much bigger than that and requires the collaboration of many. Christenne has been with the Life Center for over 20 years and is currently the Senior Donation Coordinator. She explains her role as one of the individuals who handles the evaluation, medical management, organ placement, and logistics of the operating room for an organ donation. Andi asks Christenne to share what kind of training and background is required to do work as she does. Christenne shares her personal experience with organ donation about her sister, Adrienne King who had epilepsy and cerebral palsy. What does brain dead mean? Christenne shares facts that listeners may not be aware of. She explains the difference between that and a vegetative state or coma. Organ donation and the education around it have grown significantly over the years.  Christenne explains her connection to Network For Hope and how meaningful it has been to her on several levels. Christenne put herself to paramedic school and applied as an organ coordinator. Andi asks Christenne how she prepares for her day and meeting with families in desperate times.  What happens at the bedside to evaluate potential organ donation? Christenne shares that some cases have changed her forever and how it has been a blessing. What goes into supporting the families who are in contact with them? Andi talks about how COVID-19 caused many people to reflect and seek more meaningful jobs. Andi asks Christenne to share what a typical workday looks like for a donation coordinator.  Logistics and time frames are very important in the process; Christenne explains. A lot of communication is required for this job because of the many pieces that must come together. An average case lasts about 72 hours so that the right thing is accomplished with the donor. Christenne talks about when organ gifts are placed in other locations. The donation coordinators are very passionate about giving each individual the best preservation options. Have you thought about registering to be a donor? Find out more at https://lifepassiton.org/ 3 Key Points Christenne shares her personal experience with organ donation when her sister, Adrienne King passed away and saved several other lives. Organ donation happens through the collaboration of many. Andi and Christenne talk through the organ coordinator role and the piece it is in the overall process. Emotional taxation is high in the role that Christenne has. She talks about the challenges, and blessings, and how she perseveres through them.    Tweetable Quotes: “Organ, eye, and tissue donation does not happen without collaboration.” -Andi “There are intricacies of this life-giving, life-saving process.” -Andi “When someone has been deemed as potential to help someone through donation, a donation coordinator will be onsite for 24 hours/day through the end of the process.” -Christenne “For those who do not know, when a person is declared brain dead, it is a legal pronouncement of death, it is the time that will go on their death certificate.” -Christenne “My sister was one of only 39 organ donors in Cincinnati in 1992. It was so rare.” -Christenne “Donation can have such a  positive effect on those that are donor families. “ -Christenne “This role requires you to be strong and sensitive to the fact that a family is going through the worst possible time.” -Andi “We are intimately involved with the families in the room and with the donors in the room, it is difficult.” -Christenne “Other than being a parent, this job is the most rewarding thing I will do in my life.” -Christenne Resources Mentioned: https://getoffthelist.org/ https://www.networkforhope.org/ https://www.networkforhope.org/about-us/ https://www.facebook.com/NetworkForHopeOPO

LifeCenter ahora es Network For Hope! (LifeCenter now is Network For Hope!) This episode of TTCL will feature an interview with Julie Luebbers on La Mega. This monthly interview will inform the Spanish Community about Network For Hope and the incredible miracles that happen with Organ, Eye, and Tissue Donation. Resources: https://getoffthelist.org/ https://www.networkforhope.org/ https://www.networkforhope.org/about-us/ https://www.facebook.com/NetworkForHopeOPO https://aopo.org/

A Transplant Surgeon's Journey To Help Others, with Dr Madison Cuffy During this episode of This Thing Called Life podcast, host Andi Johnson speaks with Dr. Madison Cuffy, an Associate Professor at UC Health. Dr. Cuffy has built trust-filled relationships with his transplant patients throughout the years and loves nothing more than to see them live their lives to the fullest after getting their transplant.   Episode Highlights:  Dr. Cuffy started his medical journey back in 2002 which led to a multi-organ  transplant fellowship at New York Presbyterian. Growing up in Brooklyn, Dr. Cuffy was first introduced to Cincinnati by Talib Kweli and Hi Tek. As a 14-year-old, Dr. Cuffy became interested in medicine while volunteering in a hospital cleaning instruments. Even to this day, no one in Dr. Cuffy's family has experience in medicine, nor any clue what a transplant surgeon does. Dr. Cuffy was born in the Caribbean and grew up with his great aunt in New York. One of the most common misconceptions surrounding organ donation is that the medical community will let you die. After being in transplant and seeing how one can help create life during a time of despair, Dr. Cuffy became an organ donor. The medical community is not out to harm organ donors in order to harvest their organs, contrary to popular belief. According to the statistics, on average, 22 people die every day waiting on an organ transplant. While most of his focus is on kidney transplants, Dr. Cuffy does work with all transplant organs. There is an access problem for people who need a kidney transplant and are on dialysis. Dr. Cuffy facilitates living kidney donation as the best option to treat end-stage renal disease. Andi has noticed that people of color tend to shy away from sharing their donation needs with other people. Socioeconomic issues and disadvantages can make it more difficult for certain patients to share their stories. People who don't want to share their stories need a donor champion to do it for them. There are different forms of literacy, so Dr. Cuffy makes sure his patients know that there is no stupid question. It's important for patients to speak up about their questions to their doctor so that they don't get misinformation from another source. If your physician is too busy to answer your questions now or in the future, you may need to find a different provider. Dr. Cuffy feels rewarded by his job when he sees his patients experiencing life after their transplant. His grandmother's advice was “Always be yourself”, even when things get tough, this message helps Dr Cuffy get through hard days. Raised without his parents in Brooklyn, Dr. Cuffy knows first hand that you can do anything you set your mind to. Dr. Cuffy has always had an extra gear that has allowed him to outwork everyone around him. When he goes back to Brooklyn now, Dr. Cuffy gets a different kind of respect from the people he grew up with. Dr. Cuffy thoroughly enjoys going to J. Alexanders in Cincinnati because of the sheer amount of professional African Americans that go there. 3 Key Points: While volunteering at a hospital with the hopes of staying off the streets as a 15-year-old boy, Dr. Cuffy had the opportunity to watch a kidney transplant up close, and that's how he chose the transplant route. Unlike in other cities that have multiple transplant programs with different surgeons, Cincinnati has a single transplant program where the doctors act as one unit. Living donor kidneys last anywhere from 15 to 20 years, recipients don't have to wait on a list to get one, and the quality is usually very good. Resources: https://www.networkforhope.org/ https://www.networkforhope.org/about-us/ https://www.facebook.com/NetworkForHopeOPO https://getoffthelist.org/ https://www.uchealth.com/en/transplant Dr Madison Cuffy  

Community Heroes is a special extension of This Thing Called Life's podcast. In this series, we talk to community leaders, share important information about organ, eye and tissue donation, and honor those who have been instrumental in saving lives through the gift of donation.  In this episode, we talk with Don Juan from 100.3 FM Cincy's R&B station in Cincinnati. Resources https://getoffthelist.org/ https://www.networkforhope.org/ https://www.networkforhope.org/about-us/ https://www.facebook.com/NetworkForHopeOPO

Community Heroes is a special extension of This Thing Called Life's podcast. In this series, we talk to community leaders, share important information about organ and tissue donation, and honor those who have been instrumental in saving lives through the gift of donation.  In this episode, we talk with Don Juan from 100.3 FM Cincy's R&B station in Cincinnati.   Resources https://getoffthelist.org/ https://www.networkforhope.org/ https://www.networkforhope.org/about-us/ https://www.facebook.com/NetworkForHopeOPO https://www.youtube.com/@NetworkforHope. https://aopo.org/

Welcome to today's episode of This Thing Called Life, where we delve into the ever-evolving care plan of organ, eye, and tissue donation. In this episode, we're joined by Andi Johnson and Dr. Jordan Bonomo to explore a key recommendation from the 2021 National Academies of Sciences, Engineering, and Medicine (NASEM) report aimed at transforming organ donation and transplantation practices to create a more equitable system. Dr. Bonomo shares insights into a groundbreaking initiative—the establishment of a donor care unit within UCMC's new Flex ICU. This innovative, first-of-its-kind model is designed to improve organ donation outcomes by providing comprehensive, compassionate care to both donors and their families. Tune in for this important conversation on enhancing the donor experience and advancing the future of organ donation.   Episode Highlights: Introducing Dr. Jordan Bonomo. He is a physician at the University of Cincinnati Medical Center. He's the Medical Director of the flex ICU and a professor of Emergency Medicine, neurology, neurosurgery, and neurocritical care. He is also the attending physician for anesthesia, critical care, and ECMO, and he's the medical director for donor management, for Network For Hope, formerly Life Center.  Dr. Bonomo explains the long-term development of the Flex ICU, emphasizing its multifaceted purpose to serve critically ill patients and enhance organ donation capacity. The Flex ICU aims to provide specialized care for organ donors, improving the yield and survival rate of donated organs. Specialized units can focus on the needs of the donor from a physiological standpoint and the needs of the family from an emotional standpoint. This aims to provide a much more synchronized environment and holistic care for the families and adhere to the donor wishes. All the staff are fully trained and they're vetted and vested at the same time in the process of donation.  The purpose is to have the best donor care unit available anywhere in the country. The unit is staffed 24/7 by dedicated teams to support the mission of Network for Hope. The unit is limited to donors who have been declared dead by neurologic criteria. Note that in the month of October, the first month of the launch of Flex ICU, there were zero patients declared brain dead in the region. Dr. Bonomo explains the intentional design of the unit to accommodate donor families, offering them the option to be with their loved ones or to step back as needed. The Flex ICU aims to respect the wishes of donors and families, facilitating their involvement in the donation process. Dr. Bonomo discusses the potential impact of the Flex ICU on organ donation The goal is to optimize the process for donors, families, and organ recipients, balancing the need for timely transplantation with the potential for increased donation. Andi adds that the DCU, which is housed within the flex ICU, has been discussed as a key part of the flex ICU with providers, nurses, and physicians who will be working in this unit. The team is committed to doing right by donors, recognizing the privilege and obligation that comes with their role. The Flex ICU has attracted dedicated professionals who are passionate about improving organ donation and transplantation. The process of establishing the unit has been lengthy, involving multiple stakeholders and legal considerations.  He shares that this is an organ procurement organization initiative that really is somewhat independent of the healthcare system. The belief that donation can bring healing and good from tragedy has been a driving force for Dr. Bonomo.  Dr. Bonomo has a strong foundation in bioethics, having earned his undergraduate degree in the field. Throughout his career, organ donation has been a central focus of his work in biomedical ethics. Dr. Bonomo invites listeners to ask questions and seek education about the organ donation process. The importance of accurate information and understanding the process is important for effective collaboration and support. 3 Key Points:   Dr. Bonomo explains the long-term development of the Flex ICU, emphasizing its multifaceted purpose to serve critically ill patients and enhance organ donation capacity. The Flex ICU aims to provide specialized care for organ donors, improving the yield and survival rate of donated organs. The unit is limited to donors who have been declared dead by neurologic criteria. So brain dead donors, and brain dead vernacular term death by neurologic criteria. Dr. Bonomo explains the intentional design of the unit to accommodate donor families, offering them the option to be with their loved ones or to step back as needed. The Flex ICU has attracted dedicated professionals who are passionate about improving organ donation and transplantation. The team is committed to doing right by donors, recognizing the privilege and obligation that comes with their role.   Tweetable Quotes: “Dr shutter explained to me that we do our best to save them, but when you can't, your obligation doesn't end, and the opportunity to donate is an absolute good when done well…” - Dr. Bonomo “So the the flex ICU has been in design and development for a really long time, I mean, north of 15 years, and we've had fits and starts, and we finally were able to construct it…” - Dr. Bonomo “We have teams that are dedicated to supporting the mission and network for hope, formerly Life Center…” - Dr. Bonomo “I think every family is interested in knowing that their loved one is well cared for and that their wishes are being respected.” - Dr. Bonomo Resources: https://getoffthelist.org/ https://www.networkforhope.org/ https://www.networkforhope.org/about-us/ https://www.facebook.com/NetworkForHopeOPO https://www.youtube.com/@NetworkforHope. https://aopo.org/

Community Heroes is a special extension of This Thing Called Life's podcast. In this series, we talk to community leaders, share important information about organ and tissue donation, and honor those who have been instrumental in saving lives through the gift of donation.  In this episode, we talk with Lincoln Ware from WDBZ the Buzz of Cincinnati talk station.   Resources: https://getoffthelist.org/ https://www.networkforhope.org/ https://www.networkforhope.org/about-us/ https://www.facebook.com/NetworkForHopeOPO https://www.youtube.com/@NetworkforHope. https://aopo.org/

Community Heroes is a special extension of This Thing Called Life's podcast. In this series, we talk to community leaders, share important information about Organ, Tissue, and Eye donation, and honor those who have been instrumental in saving lives through the gift of donation.   Resources: https://getoffthelist.org/ https://www.networkforhope.org/ https://www.networkforhope.org/about-us/ https://www.facebook.com/NetworkForHopeOPO https://www.youtube.com/@NetworkforHope. https://aopo.org/

Welcome to today's episode of This Thing Called Life, where we explore the evolving landscape of organ, tissue, and eye donation. Join us as we chat with Andi Johnson, featuring Jennie Wright, a double lung transplant recipient, and her daughter, Siri Imanin.  Jennie, diagnosed with sarcoidosis and pulmonary hypertension, waited a year to be listed for a transplant and another two years to receive the lungs. She recounts the challenges, including antibiotic-resistant infections and the emotional toll on her family. Siri shares how her mother's journey influenced her music and activism, emphasizing the importance of organ donation education in the Black community. They discuss the need for proactive health awareness and the impact of supportive networks on their recovery.   Episode Highlights: Andi Johnson introduces the mother-daughter duo Jennie Wright and Siri Imani, and asks Jennie to share her transplant journey Jennie shared that she had sarcoidosis, and as a result, her lungs were severely damaged, which caused pulmonary hypertension. So before the donation, she had a backpack that had oxygen and a fanny pack that had a heart pump. It took a year to get Jennie listed and two years before she got her transplant Jennie recounts the emotional and physical challenges, including contracting antibiotic-resistant infections and the decision to postpone the transplant due to her condition. Andi asks about the support journey for both mother and daughter Siri, Jennie's daughter answers that she was happy once everything was settled because she recalls the long period where her mother's life felt limited and the journey they had to go through in organ donation. Andi asks Siri, who is an artist, creator, activist, & cultivator, how the journey influences her music and the work that she does from a creative standpoint. Siri answers that it influenced everything and that she grabs inspiration from her mother and grandmother in every way. Siri shares that when they first got the diagnosis, she documented and made music about it. Andi asks Siri to share her favorite memory with her grandmother Andi asks what they would like to share with others, particularly in the black community, after just living through this experience. Siri shares her personal journey of overcoming misinformation and distrust, emphasizing the need for education and awareness. Andi questions what they would like to say to their donor family. Jennie expresses her deep gratitude to the donor family for their selflessness and the opportunity to continue living. Jennie and Siri discuss the activities and experiences they can now enjoy, such as walking and attending events. 3 Key Points: Jennie shared that she had sarcoidosis, and as a result, her lungs were severely damaged, which caused pulmonary hypertension. So before the donation, she had a backpack that had oxygen and a fanny pack that had a heart pump. It took a year to get Jennie listed and two years before she got her transplant because there were certain conditions to be met for her to get the transplant. Siri, Jennie's daughter recalls the long period where her mother's life felt limited and the journey they had to go through in organ donation. Siri is also an artist, creator, activist, & cultivator, and she found inspiration in her mother's journey. Siri shares her personal journey of overcoming misinformation and distrust, emphasizing the need for education and awareness. The conversation touches on the historical context of distrust in the medical system within the Black community and the importance of updating that narrative. Tweetable Quotes: “...with that waiting process, the stars have to be perfectly aligned, because you have to be, to be at the top of the list, you got to be the sickest of the sick, right? But you can't be too sick.” - Andi Johnson “My faith helped to sustain me, and I feel like God showed me a moment on the other side of this. And I just kind of held on to that.” - Jennie Wright “I think a lot of our work with people experiencing homelessness just came from the understanding early that life could take you anywhere, no matter what type of person you are, no matter where you come from, you can place where you just need people.” - Siri Imani “I was always planning on making sure, like, people knew who my mama was, people knew who my grandma was, and really remember because they made it clear who they were in their lifetimes.” - Siri Imani Resources: https://getoffthelist.org/ https://lifepassiton.org/ https://lifepassiton.org/board-of-directors-leadership/ https://www.facebook.com/LifeCenterOH https://www.youtube.com/user/LifeCenterOH https://aopo.org/

LifeCenter ahora es Network For Hope! (LifeCenter now is Network For Hope!) This episode of TTCL will feature an interview with Julie Luebbers on La Mega. This monthly interview will inform the Spanish Community about Network For Hope and the incredible miracles that happen with Organ, Eye, and Tissue Donation. Resources: https://getoffthelist.org/ https://www.networkforhope.org/ https://www.networkforhope.org/about-us/ https://www.facebook.com/NetworkForHopeOPO https://aopo.org/

In this heartfelt episode of This Thing Called Life Podcast, host Andi Johnson sits down with Mario Jarrett and his mother, Kesia, to discuss Mario's incredible journey following a cardiac arrest at just 16 years old. They share the challenges and miracles that shaped his need for a heart transplant, highlighting the unwavering love and support that surrounded him throughout this life-altering experience. Mario's story is a testament to resilience, faith, and the determination to embrace life fully. Join us as they delve into the power of hope and the importance of striving for personal growth every day. Don't miss this inspiring conversation!   This episode is dedicated to Mario's Heart Donor Amanda and her family! Episode Highlights: Mario Jarrett shares what led to his need for a Heart Transplant.  Mario was a high school Athlete participating in Baseball, Football, and Track & Field. Mario's cardiology team thought he suffered mini heart attacks over a period of time without knowing it.  Mario indicated he felt like he was just dehydrated. In May of 2021, while preparing for the state track and field competition, he went into cardiac arrest. Doctors told Mario and his family that he needed to have a heart transplant. Mario received a heart transplant at Children's Hospital in Cincinnati on July 26, 2021. Mario talks about how his Faith helped him get through his Health Crisis. Kesia Jarrett, Mario's mom, shares her gratitude for the donor's family, health providers, pastoral family, and all the family and friends who were there for her family. Kesia reveals that Mario's Doctors thought his health issues were stemming from Asthma but never expected it was his heart. Kesia remembered her spiritual nudge to seek a specialist for Mario. Kesia shares her family's motto to Live life and remember to help others in any way you can. Andi encourages Mario and Kesia to continue to share their story because it will help many understand the need for Organ Transplants.    3 Key Points: Even young athletes can experience health conditions, that require the need for an Organ Transplant. Remember self-care if you are a caregiver for someone going through a health issue. Share your gifts and create access and awareness of necessary resources for those in need, because, in the blink of an eye, it could be you.  And always remember we are meant to be in community with one another.    Tweetable Quotes: “Step out of your comfort zone every day.” - Mario Jarrett “I am grateful for every opportunity that we get to spread more light and awareness for individuals to consider being a donor for children like Mario.” - Kesia Jarrett “I am not bitter.  I know it happened for us…not to us.” - Kesia Jarrett “Stay in the space of understanding that even though you are going through this journey it is not the end… until it is.” - Kesia Jarrett Resources: https://getoffthelist.org/ https://www.networkforhope.org/ https://www.networkforhope.org/about-us/ https://www.facebook.com/NetworkForHopeOPO https://www.youtube.com/user/LifeCenterOH https://aopo.org/  

Welcome to today's episode of This Thing Called Life, where we explore the evolving landscape of organ, tissue, and eye donation. Join us as we chat with Dorrie Dils, the CEO of Gift of Life Michigan and the new President of the AOPO. In this episode, Dorrie and Andi Johnson delve into Dorrie's journey as a female CEO in the transplant field, discussing the challenges and triumphs she's faced along the way. They'll also highlight the significant increase in donations following expanded donor criteria, reflect on Dorrie's impactful speech, and uncover the steps that led her to this pivotal role. Don't miss this insightful conversation! Episode Highlights: Dorrie Dils, president and CEO of Gift Of Life Michigan and the new president of the Association of Organ Procurement Organizations, shares her experience in her inaugural year as president.  Dorrie shares that she has been in this field for 33 years, and there's been tremendous pressure from Congress, the White House, and outside entities to drive donation forward. There have been concerns due to change in metrics which may cause a rise in decertified OPO's and what that will do for patients who are waiting and for donors and donor families who wish to donate.  There has been a lot of change but Dorrie shares that she feels better today than ever before. Dorrie shares that the other big thing, which can't be denied, is just the massive increase in donations after circulatory death or ECD. Andi asked Dorrie what other positions she has worked in the OPO, Andi wanted to take a minute to have Dorrie share, as a woman in this field, what she did to reach her position of leadership today. Dorrie shares that she was in Critical Care Nursing, then a Donation Coordinator, and at times needed to be in hospital development, PR and Public Education.  Leadership opportunities led her to becoming procurement director then Chief Clinical Officer, before becoming the president, and CEO. Dorrie talks about her speech and what motivated her to talk about correlating the Barbie Movie (2023) and the need to be perfect in the transplant world.   3 Key Points: President and CEO of the Gift Of Life Michigan and the new president of the Association of Organ Procurement Organizations, Dorrie Dils shares her experience in her inaugural year of presidency, and the challenges due to changes. Dorrie shares that the other big thing, which can't be denied, is the massive increase in donation after circulatory death or ECD. Dorrie shares her years of experience, the steps that she had to take before stepping into her leadership role as a woman CEO, and the role of her deep passion for her working field.    Tweetable Quotes: “I've been in this field for 33 years, and it truly is the biggest change I've ever seen in our work, and there's been tremendous pressure from Congress and the White House and outside entities to drive donation forward, which has been a good thing.” - Dorrie Dils “We have in the world, have the best system for organ transplantation. And I think sometimes that gets forgotten.” - Andi Johnson “But I think the biggest ‘aha' moment is just how I've always been a hard worker. I've always felt in control of my success.” - Dorrie Dils “This field has evolved so much, and one of the things that I really hope will be my legacy is the evolution of how women are seen and treated in this field.” - Dorrie Dils Resources: https://getoffthelist.org/ https://lifepassiton.org/ https://lifepassiton.org/board-of-directors-leadership/ https://www.facebook.com/LifeCenterOH https://www.youtube.com/user/LifeCenterOH https://aopo.org/

"Uniting for Hope: The Merger Transforming Organ, Eye and Tissue Donation” We're thrilled to be back after our summer break, kicking off with exciting news about a transformative merger aimed at enhancing access to life-saving transplants. In this episode, hosts Andi Johnson, Julie Bergin, and Barry Massa delve into the merger between Kentucky Organ Donor Affiliates (KODA) and LifeCenter Organ Donor Network. Both organizations have a rich history of excellence in organ donation advocacy, and together they will rebrand as “Network for Hope.” This partnership will harness their combined strengths to bolster advocacy and community outreach efforts. Join us as Julie and Barry share their inspiring personal journeys and reveal how their leadership has shaped this merger, paving the way for a brighter future for organ recipients in need of support. Don't miss it! Episode Highlights: Andi Johnson introduces guests Julie Bergin and Barry Massa and the upcoming merger of KODA and LifeCenter. Barry explains the merger journey, starting with their initial meetings at airports heading to national conferences, and the proximity of each organization. The conversation about the future of organ procurement organizations eventually led to discussions about merging the two organizations. The boards of both organizations were supportive of the merger. Julie shares her experience as a new leader in the industry and the support she received from Barry. Julie highlights the synergies between the two organizations, even before the merger conversation began. Barry discusses the smaller size of LifeCenter compared to other organ procurement organizations and the potential for both organizations to flourish together. Andi asks about the challenges faced during the merger process. Barry discusses the unique nature of organ procurement organizations and the need to work through nuances. Julie talks about the challenge of change and the importance of reassuring staff that the changes are for the betterment of the mission. Andi asks about the meaning of "Network for Hope" and its significance. Julie explains the importance of the word "network" in "Network for Hope," highlighting the collaborative nature of the mission. Barry adds that the name "hope" is crucial, as it represents the hope brought to donor families and recipients. Andi asks what advice Barry and Julie have for other OPO's who are aiming for the same goal of merging. Barry says it is important to pick the right partner. The guests share their own experiences about some of the donors who have benefited from the gift of donation. Both Barry and Julie highlight the importance of community engagement and meeting people where they are. Julie brings up the special team that supports donor families. She also stresses the importance of one-to-one connections and providing resources for staff to better connect with families. Julie shares a personal story. Barry discusses the importance of providing emotional support. Resilience is a leader's responsibility and emotional support is crucial for staff to continue to work effectively. 3 Key Points: Andi Johnson and guests Julie Bergin and Barry Massa discussed the merger between Kentucky Organ Donor Affiliates and LifeCenter Organ Donor Network. Barry and Julie discuss the unique nature of organ procurement organizations and the need to work through nuances. They also talk about the challenge of change and the importance of reassuring staff that the changes are for the betterment of the mission. They (Barry & Julie) express optimism about the future of Network for Hope and the importance of everyone working together to achieve their goals.   Tweetable Quotes: “Barry was somebody who I was able to lean on as a new leader in this industry…” - Julie Bergin “So I think we realized that there was synergies there, even before the conversation turned to to merge our organization.” - Julie Bergin “We see an opportunity to really do things better…” - Julie Bergin “None of us do everything exactly the same…” - Barry Massa “Change in general is really hard for people, and our staff have had to deal with constant change, or the assumption that it's going to change, that has been a huge challenge, helping to inform them, reassure them, guide them.” - Julie Bergin “I think that's the thing that people probably fear most, is losing that culture that each had. And yeah, it's going to change a little bit, but it's going to be better in the long run, right?” - Barry Massa “Our whole job is to come to where they are, you know, see what their needs are, and to work with them to to allow donation to happen and still be respectful and mindful of the needs that they have as individuals.” - Julie Bergin Resources: https://getoffthelist.org/ https://lifepassiton.org/ https://lifepassiton.org/board-of-directors-leadership/ https://www.facebook.com/LifeCenterOH https://www.youtube.com/user/LifeCenterOH https://aopo.org/

This Thing Called Life Podcast will be on a summer hiatus returning this fall.  The essence of our mission remains. When we return, you can expect more powerful organ, eye, and tissue donation stories from the donors, recipients, families, and frontline healthcare workers. While we're on this break, if you or someone you know is seeking information about organ, eye, and tissue donation, I strongly encourage you to visit lifepassiton.org. It's a rich source of resources, stories, and opportunities for you to make a difference. Remember, every act of giving, no matter how small, has the potential to change a life. Even in our absence, let's continue to spread the word, encourage others to register as donors, and keep the spirit of "This Thing Called Life" alive and thriving.   Thank you for your unwavering support, understanding, and compassion for us and our guests throughout this journey. Until we meet again, take care of yourselves and each other.

Episode 93: Family Genetics That Lead To The Need For a Liver Transplant For Tony Burdette   On this episode of This Thing Called Life, Andi will speak with Mr. Tony Burdette, who will discuss his involvement with organ donation. Tony's life was saved in August 2019 via a liver transplant. His father passed down a genetic disease called alpha-1 antitrypsin deficiency to him. He was diagnosed in the early 1990s, with symptoms including exhaustion and low platelet counts. Tune in for his great story.   Episode Highlights:  Tony had never given much thought to organ donation, but sometimes it takes a crisis to bring it to the forefront of your mind. Tony's father underwent a liver transplant in 1997, but it was a painful experience since, after 14 hours, the surgeons came out and told them that he probably wouldn't survive. But, happily, doctors were able to get it to work sufficiently, and he received a second transplant two days later.  The hereditary condition does not impact everyone. They can live perfectly well without it. However, something triggered Tony's liver in early 2019, and his liver began to fail rapidly. Tony had all the excess fluid in his body, common for people with liver failure. So, he had to have the procedure called a thoracentesis, and over seven months, he had to have that procedure done 52 times. Tony couldn't keep having these procedures every other day. So at the University of Cincinnati Medical Center for evaluation at the Transplant clinic, he was put on the list rather quickly around the beginning of May and received his liver on August 3rd, 2019. It was a quick illness for Tony and a painful one, but thankfully his transplant and the surgery were very successful. He was discharged from the hospital just five days later without any complications. Tony has a brother. He obviously has the deficiency, but he hasn't had any symptoms so far. He is under the care of a GI, and they are keeping close tabs on him. Both of Tony's children have a deficiency as well, and they are under the care of the liver transplant team at children just out of precaution. The doctors check them every year and have liver scans done to keep a check on them and make sure everything is ok. About three weeks after Tony's transplant, he received two letters in the mail from elementary-age girls who wrote him a letter and said that they just wanted to let him know that he had received their mother's liver. Tony has studied music at the University of Cincinnati College-Conservatory, one of the greatest in the world, and it is such an honor to be accepted there. Tony is the artistic director of an organization called Aviva Voices Choral Organization. It's an organization that he founded, and it provides high-quality community choirs for children, youth, and adults. The program's cornerstone is the brand new work for a course and orchestra called the breath of life, and it was written actually before the pandemic. Often, being open with what you are going through can impact other people. When Tony was going through all this, we posted periodically about this on social media as encouragement for people. Tony encourages people to not be afraid no matter what you are going through in life. Be open, share, and find people that you can talk to and know that your story can impact people.   3 Key Points: Alpha-1 antitrypsin is an enzyme and it is created in the liver. The deficiency is that the enzyme gets trapped in the liver and creates a deficiency in the lungs. But when that enzyme gets trapped in the liver, it can cause liver damage. Tony has spent his whole career serving as a professional musician, singing professionally with opera and orchestras around the country, and doing a lot of conducting with choirs and teaching singing. Tony's concert's date is Saturday, April 30th, the last day of the month and the last day of donating life month. The concert is taking place at Christ Church Cathedral, which is a huge, beautiful venue.   Tweetable Quotes: “The dichotomy of organ donation is that, a life has to be lost in order to give life, but it's also a beautiful thing of sacrifice.” - Tony “You never know how donation and transplantation will work, but Tony thinks it's probably healing in many ways for both the donor family and the recipient.” – Andi “One of our core values is to be able to use the power of music to shed light on important things, and when we started this organization, we said that we wanted to have at least one concert once a year.” – Tony “Creating a free concert is based on the theme of life, the celebration of life, and use it woven together with stories. And the interesting thing about it is to bring awareness and make people aware of the power of organ donation.” – Tony “We are a core organization, and we specialize in classical music. You don't have to be affected by classical music or anything because there will be various music.” - Tony   Resources Mentioned: LifeCenter | Website | Facebook | Instagram | YouTube|  Twitter Andi Johnson  website |LinkedIn  Organ Donation Website https://www.vivavoices.net/about/ https://www.facebook.com/tony.burdette.5

This episode of TTCL will feature an interview with Julie Luebbers on La Mega.  The monthly interview will provide the Spanish Community with information about "Network For Hope" (New Name, formally Life Center, but the same passion for saving lives) and the incredible miracles that happen with Organ, Eye, and Tissue Donation.

A Calling To Find A Kidney Donor For All In Need   Darcy Gibson and Andy Johnson discuss the challenges faced by kidney transplant recipients and their families. In this episode they shared their experiences highlighting the importance of storytelling and education when raising awareness about kidney disease, emphasizing the impact of personal stories on building empathy and creating a sense of community.  Episode Highlights: Andi Johnson introduces Darci Gibson and the non-profit organization “Off The List”. “Off the List” aims to support individuals on the kidney transplant list and their families through their journey of waiting for a kidney and provide them with tools and resources to help them share their stories to find donors Darci shares what motivated her to start this non-profit and the passion behind the project. Darci tells us that her father needed a Kidney transplant, so she leveraged her background in Marketing to share her family story and get the word out about his need. Andi shares the importance of taking action and control over one's health, particularly for those with kidney disease or type 2 diabetes. Darci highlights the need for creating awareness and conversations around these conditions, as people often accept them as their fate without realizing they can take action to prevent or manage them. Darci shares an "aha" moment about the number of young people calling for kidney transplants, highlighting the need for early education and resource sharing. Darci offers encouragement to frustrated dialysis patients, emphasizing hope and support from others, including the possibility of finding a living donor. Andi asks how many families are “Off The List” helping now, and Darcy shares that they are currently working with 80 families. For those who want to contribute, the easiest way would be to go to their website https://getoffthelist.org/  There are programs through the National Kidney Registry where you can donate a kidney. It's called their advanced Donation Program, and you can designate up to five people in your family should they ever need an organ donation.   3 Key Points: Darci Gibson tells us about their non-profit organization called ‘Off The List' and shares how she was pushed into that journey by her own experiences. She also highlights the importance of early education for the next generation to help prevent kidney disease and to have the strength to believe that they could still take steps to manage it. Darci offers words of encouragement to a frustrated dialysis patient, emphasizing hope and support from others, including the possibility of finding a living donor. Tweetable Quotes: “... You have to share personal information. And that's hard to do, as humans, it's hard to ask people for help. And so I felt like there was a gap there that we could help fill and partner with the transplant centers and dialysis and nephrology to be able to just really dig in and personally with families through that and give them the tools.” - Darci Gibson “We just want them to know that we're here.” - Darci Gibson “And it's interesting how when I look back now, all of those things, was preparing me to do this. I mean, there was a reason and a purpose and that's why God was preparing me for this work.” - Darci Gibson Resources: https://getoffthelist.org/ https://lifepassiton.org/ https://lifepassiton.org/board-of-directors-leadership/ https://www.facebook.com/LifeCenterOH https://www.youtube.com/user/LifeCenterOH https://aopo.org/

In this episode of This Thing Called Life, Andi talks with Marty and Bonnie Garneret. Bonnie is not only Marty's wife but also his kidney champion.  Marty and his wife have been married for 42 years this month, and he says that he married an angel without wings.  They share their special journey and you are not going to want to miss it!

Community Heroes is a special extension of This Thing Called Life's podcast. In this series, we talk to community leaders, share important information about organ and tissue donation, and honor those who have been instrumental in saving lives through the gift of donation.  In this episode, we talk with Lincoln Ware from WDBZ the Buzz of Cincinnati talk station.     Resources: https://lifepassiton.org/ https://www.facebook.com/LifeCenterOH Life Center Phone # 513-558-5555

This episode of TTCL will feature an interview with Julie Luebbers on La Mega.  The monthly interview will provide the Spanish Community with information about Life Center and the incredible miracles that happen with Organ, Eye, and Tissue Donation.

Coach Darryn Chenault's Kidney Transplant Journey   It's April so it's time to celebrate the tremendous generosity of those who have saved and healed others as organ eye and tissue donors. Today we introduce Coach Darryn Chenault, to share his Transplant Journey and discuss how he broke the cycle of not communicating about Kidney Disease in his family.  Episode Highlights: Andi introduces Coach Darryn Chenault and how she heard his story on TV  Darryn shares with us his love for being on the field coaching and how one day there was a change in how his body responded to high-energy activities. Darryn explains how he thought it was a hereditary disease, ignoring the risk and thinking he was young and healthy.  Darryn eventually figured he would have to take meds like he had witnessed with his dad, but when he got COVID, it took his Kidney Issues from Stage 2 to Stage 5. Darryn shares that since he was “That Guy” a police officer, a hero to his family, and someone who works out every morning, he didn't want to feel like he was not in control. Going through the struggles of his disease, Darryn had a hard time adjusting to not being “Out and about”, that's when he decided that he needed a Kidney. Darryn shared how he was saved by a friend who advertised to the community that he needed a kidney transplant. Darryn's nephew, Arryn, a firefighter called and said he was a match and wanted to donate his kidney. Darryn's family encouraged him to receive this gift. Andi and Darryn discuss the issue that Black families have with higher rates of kidney disease and diabetes, which can lead to the need for dialysis and transplants. Darryn suggests a lack of education, on the topic, prevents black families from stepping up at the same rate to be living donors. Darryn's actual birthday is April 9 but now he tells people that his new birthday is June 6, his Transplant Date, because he got more time. Darryn and Arryn have a unique bond after sharing this kidney transplant experience, inspiring others at family gatherings. Darryn extends gratitude for his ability to spend time with family and enjoy activities they couldn't do before, while also acknowledging the importance of self-care and education for transplant recipients. 3 Key Points: Coach Darryn was always there for his players and the community, he was someone everyone looked up to. Being on the receiving side was an adjustment requiring him to have new routines and acceptance of the gift of life. Coach Darryn shares his wonderful gift of receiving the Kidney Transplant from his nephew Arryn on June 6, and how their bond got even stronger and inspired other people in their family. Darryn shares gratitude for being able to spend time with family and enjoy activities they couldn't do before, while also acknowledging the importance of self-care and education for transplant recipients. Tweetable Quotes: “ Because here I am thinking I'm the guy like I work out in the morning. Good kids are looking up to me. I'm a police officer. I'm a superhero to my kids and my family. so to speak. I just wanted to be that guy.” - Darryn Chenault “And that's what I learned throughout this whole process that I needed to lean on my family.“ - Darryn Chenault “I mean, it was it was a tough ride, but we did it.” - Darryn Chenault “Black families have higher rates of kidney disease and diabetes, which many times lead to needing dialysis and a transplant yet we do not as a community… as a race, we don't step up at the same rate to be living donors as white people” - Andi Johnson "We gotta open up our heart and let them help us." - Darryn Johnson Resources: https://lifepassiton.org/ https://lifepassiton.org/board-of-directors-leadership/ https://www.facebook.com/LifeCenterOH https://www.youtube.com/user/LifeCenterOH https://aopo.org/

Community Heroes is a special extension of This Thing Called Life's podcast. In this series, we talk to community leaders, share important information about organ and tissue donation, and honor those who have been instrumental in saving lives through the gift of donation.  In this episode, we talk with Don Juan Fasho from 100.3 Cincy's R&B station.     Resources: https://lifepassiton.org/ https://www.facebook.com/LifeCenterOH Life Center Phone # 513-558-5555

From Transplant to Triumph: A Nurse's Journey of Healing, Giving Back and Finding Love   Today we introduce Asia Werner, a transplant recipient and nurse with UC Health. Tune in to hear Asia's incredible story of receiving her heart transplant as an infant, her decision to become a nurse, and her advice for young people who might have to go through an organ transplant journey.    Episode Highlights: Andi introduces our guest, Asia Werner. Asia shares that she received her heart transplant on her 1st birthday Andi asks Asia how she felt after receiving media attention as she grew up Asia tells us that when she received her heart, it was around Christmas, and that made her story more interesting to the public Andi asks Asia about her nursing career decision Asia's love of taking care of others and making people feel better Asia worked with many spinal cord injury patients, which she sees as a sign of the universe guiding her toward this role. Andi asks about Asia's participation in the Transplant Games The Transplant Games are the Olympics but for the transplant team, so recipients, donors, and even some medical professionals participate. Asia tells us that everybody who participates in the games goes through the same situations and they can all relate to each other and agree that they shouldn't take life for granted. Andi asks Asia what her advice would be for young people going through the same situation as she did Asia advises people who will go through the transplant journey that they can still do what normal people do but with caution.  The most important thing is to make sure that they maintain follow-up doctor visits for check-ups and listen to their doctor's recommendations Asia reflects on her transplant experience, which provided her the freedom to pursue a normal life, and the importance of donors Asia expresses gratitude to their donor's family, acknowledging their life-saving decision 3 Key Points: Asia tells her amazing story about receiving her heart on her 1st birthday, which was close to Christmas, and how it got media attention Asia explains what got her into nursing. She tells us that at first, she thought she wanted to be a doctor but when she witnessed the difference between the direct impact of patient care nurses provided, it made it more clear what her choice would be. Asia shares her experience in the Transplant games and how the people participating relate to each other. Tweetable Quotes: “So it was really nice having somebody that I knew and was comfortable with because I was able to kind of open up a little more with him.” - Asia Werner “I know what it's like to have good nurses and I know what kind of a difference a good nurse can make.” - Asia Werner “Basically, it is the Olympics but for transplant people, so recipients, donors, and even some medical professionals are there.” - Asia Werner “Everybody is kind of in a similar situation.  My theory is that everybody knows how precious life is there and they understand, kind of, just how precious it is and how they don't take life for granted. They don't use their life to be mean to people.” - Asia Werner Resources: https://lifepassiton.org/ https://lifepassiton.org/board-of-directors-leadership/ https://www.facebook.com/LifeCenterOH https://www.youtube.com/user/LifeCenterOH https://aopo.org/

This episode of TTCL will feature an interview with Julie Luebbers on La Mega.  The monthly interview will provide the Spanish Community with information about Life Center and the incredible miracles that happen with Organ, Eye, and Tissue Donation.

This episode of TTCL will feature an interview with Julie Luebbers on La Mega.  The monthly interview will provide the Spanish Community with information about Life Center and the incredible miracles that happen with Organ, Eye, and Tissue Donation.  

Heartbeat Chronicles - Pioneering Heart Transplant at Christ Hospital With Guest Terri and George Cecere   February is American Heart Month, where women are encouraged to focus on their cardiovascular health. In today's episode, we want to introduce you to George and Terri Cecere. Tune in and hear about their journey together managing heart disease and ultimately a heart transplant as Husband and Wife.    Episode Highlights: Andi introduces George and Terri Cecere George and Terri tell the story of how they met and Terri being diagnosed with Hodgkin's Lymphoma early in their relationship In 2002, Terri was diagnosed with Cardiomyopathy at 43 years old Terri found a cardiologist with experience in heart failure treatment, which helped manage her condition until the time she needed a heart transplant at age 62 Andi asks about the symptoms of Cardiomyopathy Terri explains her symptoms and relates them to common heart failure  Terri lived with cardiomyopathy for 17 years, receiving treatment and care from Dr. O'Brien and the advanced heart failure team Her condition gradually worsened over time, leading to the recommendation of a heart transplant Terri received a heart transplant at Christ Hospital Health Network, becoming the first recipient of the program Andi asks Terri about how she feels about all the media attention Terri shares her story and advocates for heart health awareness with the help of her husband George and Life Center Terri expresses gratitude to the donor family for giving her the gift of life, acknowledging their difficult decision to donate Terri also talks about how the reality of having to care for someone with heart disease is challenging and the gift George has been through this journey 3 Key Points: Terri and George talk about how they thrived through 17 years of Heart Disease They share their experiences for 17 years leading up to the heart transplant and express gratitude for how they were cared for by their doctor(s) and hospital Terri now advocates for heart health awareness with the help of her husband George and Life Center   Tweetable Quotes: “Heart disease is the leading cause of death for women.” - Andi Johnson “I decided I needed a cardiologist who had experience with heart failure in particular, because it makes a huge difference.” - Terri Cecere “But I do think that intellectually we knew that at the end of the journey, the heart transplant was possible.” - George Cecere “Since Terri's transplant, which was, you know, only about 15 months ago, they've completed 19 heart transplants, which is an astounding number considering you know, how new the program is.” - George Cecere “And there's not a better person to have as your caregiver than George. I mean, he's, he was amazing.” - Terri Cecere Resources: https://lifepassiton.org/ https://lifepassiton.org/board-of-directors-leadership/ https://www.facebook.com/LifeCenterOH https://www.youtube.com/user/LifeCenterOH https://aopo.org/

Community Heroes is a special extension of This Thing Called Life's podcast. In this series, we talk to community leaders, share important information about organ and tissue donation, and honor those who have been instrumental in saving lives through the gift of donation.  In this episode, we talk with Don Juan Fasho from 100.3 Cincy's R&B station.   Resources: https://lifepassiton.org/ https://www.facebook.com/LifeCenterOH Life Center Phone # 513-558-5555

A Guide Through Loss And Transformation, With Kelly Gunnels Valines   In today's episode, we want to introduce you to Kelly Gunnels aka author K.R.V. Gunnels as she discusses her story of advocacy and activism following the murder of a family member in 2017. Through the passing of her brother, she shares the importance of addressing systemic issues affecting black communities and how you can help others through organ donation. Kelly also talks about her book “A Widows Guide” and the inspiration behind it.   Episode Highlights: Kelly Gunnels shares her story of advocacy and activism following the murder of her brother Reco in 2017. Reco just renewed his license and when he was asked to be an organ donor, he said yes. Reco's decision gave Kelly the confidence and comfort to contact Life Center.  When Kelly was asked to speak about stopping gun violence in the community her journey of activism and leadership began. So often, in the black community, organ donation is not discussed but when Reco died, his family was able to honor his wishes and donate his organs, which helped several people in need.  Kelly recalls the moments when Reco was brought to the ER, and how the hospital staff fought for his life. Kelly also experienced the loss of her husband which inspired her book; a Widows Guide. Her journey in writing made her recognize something about herself, she writes when she's in pain.  She recounts her journey through grief after losing her husband suddenly, including an investigation which enhanced her struggle to come to terms with the loss. Kelly met a fellow author who introduced her to a spiritual mentor, who helped her find faith and surrender to God's plan. 3 Key Points: Kelly Gunnels talks about the passing of her brother Reco and how the tragedy launched her journey to use her voice and talk about the reality of violence in the community and the importance of organ donation.  She talks about her family's legacy and how she started writing. The passing of her husband and the difficulty of the situation inspired her to write her book “A Widows Guide”. Organizing a blood drive and healing after loss. Tweetable Quotes: “​​We're all working to be the best that we can be.” - K. Gunnels “Everyone's not going to be a match for you. But you have to decide.” - K. Gunnels “So yes, they will fight for you, even if you sign up to be a donor they will still fight for your life.” - K. Gunnels “What I recognize about myself, is that I always write when I'm in pain.” - K. Gunnels “God shows up for us all the time.” - K. Gunnels Resources: https://lifepassiton.org/ https://lifepassiton.org/board-of-directors-leadership/ https://www.facebook.com/LifeCenterOH https://www.youtube.com/user/LifeCenterOH https://aopo.org/   https://www.amazon.com/s?k=widows+guide+journey+through+insanity   Facebook: Kelly Gunnels - https://www.facebook.com/kgunnels

This episode of This Thing Called Life will feature an interview with Julie Luebbers on La Mega.  The monthly interview will provide the Spanish Community with information about Life Center and the incredible miracles that happen with Organ, Eye, and Tissue Donation.

The Four Year Journey Of Waiting For A Kidney Donation   In today's episode we want to introduce you to Carmelita C Jones. Carmelita discusses how she dealt with the realities of kidney failure, diabetes, high blood pressure, adulting, and why it is important for her to be an advocate for her circumstances. By understanding the real struggles of kidney disease and the symptoms associated she hopes to help the next generation avoid long term damage to the kidneys and help them live a better and healthier life!   Episode Highlights: Carmelita Jones shares her story of needing a kidney transplant and her passion for giving and loving others She shares about career changes and medical challenges after a car accident She talks about her diagnosis and treatment options for Kidney Failure. Life before the accident, Carmelita knew she had diabetes and high blood pressure.  Carmelita discusses diabetes, the organ transplant waitlist, and the black community. “Make better choices, eat to live, not just live to eat.” She points out the importance of teaching the next generation about nutritional value because they risk making the same mistakes as the past generation. There is a rise in children being diagnosed with diabetes at a much younger ages. There are more organizations to help with better nutrition, such as fresh fruits and vegetables in grocery stores, cooking classes, community gardens, etc. that could help with the problem. Carmelita describes her dialysis routine, including early morning appointments and time spent in the bathroom. She also describes how COVID-19 affected her financial situation. Carmelita shares her struggles with kidney disease and the impact on her daily life, including the importance of regular dialysis treatments and the need for a kidney transplant Carmelita advocates for normalizing conversations about mental health and wellness in the black community, emphasizing the importance of being open and honest about one's struggles. She reflects on the importance of a supportive tribe in navigating adulting and its challenges. She provides contact information for those interested in learning more or donating, emphasizing the anonymous process and the positive impact on donors' lives. 3 Key Points: Carmelita Jones shares the reality of having Kidney Failure and how she found it out after an accident. She also shares that prior to the accident, she knew she was diabetic and had high blood pressure.  Carmelita discusses a brief connection of the african american history and how we pass on the generational curse of bad choices when it comes to our health. Carmelita advocates for normalizing conversations about mental health and wellness in the black community, emphasizing the importance of being open and honest about one's struggles Tweetable Quotes: “High blood pressure is another major factor. Not to specify one particular group, but you know, African Americans suffer from high blood pressure because of our history literally on slave boats.” - Carmelita Jones “We need to teach our children first and foremost. So we don't give them our bad habits.” - Carmelita Jones “If you look at obesity, and our young people, it's off the charts. It's ridiculous. And it's because they're following our habit.” - Carmelita Jones “Adulting is hard. It requires so much patience. And a lot of times we take that time to take care of ourselves.” - Carmelita Jones Resources: https://lifepassiton.org/ https://lifepassiton.org/board-of-directors-leadership/ https://www.facebook.com/LifeCenterOH https://www.youtube.com/user/LifeCenterOH https://aopo.org/   Christ hospital call Bree @ 513-585-1427 for answers to any questions about the process of kidney donation for Carmelita   Facebook: Carmelita C. Jones - https://www.facebook.com/carmelita.c.jones

Todos Pueden Ser Donantes   During this episode of This Thing Called Life, host Andi Johnson speaks with Courtney Schapier, a liver donor, the sister of a liver recipient, and one of the Organ Donation Coordinators at LifeCenter. Upon learning about her brother's need for a liver, Courtney made the incredibly brave decision to make a difference. Her story is simply amazing!   Episode Highlights:    Courtney has been an Organ Donation Coordinator at LifeCenter for the past 6-7 years. Donation Coordinators handle the medical management and evaluation for organ donors. Amongst other responsibilities, Courtney plays a large part in matching organs to donors. Sometimes, organ donation acts as the silver lining to families that are going through an incredibly hard time. Donation coordination is a 24-hour job because donation does not run on a 9-5 schedule. From the time that a case opens to the time it closes, Courtney is on the clock for 36 hours. Courtney uses CrossFit and a great support system as outlets for the high stress levels of this job. With such a high-stress job, it's no surprise that there is a high level of turnover. There have been times where the stress of the job has made Courtney question her desire to be here. COVID brought everything to a screeching halt when it first exploded back in March. The sheer amount of unknown information has made the ongoing global pandemic that much scarier. Things have finally begun to get back to normal, meaning more lives are being saved via organ donation. In 2016, Courtney's brother discovered a huge mass on his liver that required a transplant. Unfortunately, Courtney lost her father when she was only 2 months old, so her brother acted as a father to her. Courtney was informed that she was a donor match for her brother while supporting a family that was pulling life-support. The weight of the situation started to feel heavy when Courtney sat on the pre-op table. Sitting outside the OR doors on the pre-op table, Courtney was rolled back for surgery after only 20 or 30 minutes. There were a handful of signs that something was wrong with Courtney's brother's liver long before the doctors caught it. After everything was said and done, it took a 10-hour procedure for Courtney to donate over half of her liver. The first thing that Courtney can remember is getting sick immediately after surgery. Courtney finally got to see her brother when she was transferred to the ICU. It was a complete shift in lifestyle for Courtney from the moment that she found out she was a donor match for her brother. Finding living liver donors is more rare than finding living kidney donors. Both Courtney and her brother fully recovered and are as healthy as they can be today. TX Jet was kind enough to donate its services to fly Courtney and her family out for surgery. After her donation, Courtney was sure that she was at the right job at LifeCenter. Courtney was comforted by the knowledge that everything in her life made her the perfect donor for her brother. This year, Courtney is focusing on being more present when she is with loved ones. The amazing thing about donation and transplantation is the opportunity to potentially save a life.   3 Key Points: Organ Donation Coordinators manage everything from the moment a donor decides to donate, to the time that the organ is sent to its recipient. It takes a very special person to not only manage the responsibilities of being a Donation Coordinator, but also the rollercoaster of emotions that come with the job. Courtney donated just over 50% of her own liver, which was oversized, to begin with, to save her brother's life.   Resources Mentioned: LifeCenter (website) (Facebook) (Instagram) (YouTube) (Twitter) Andi Johnson (website) (LinkedIn) TX Jet (website)

Episode 76: MAY 2023 Appreciation and Community Impact Events   It's been a minute! April was National Donate Month, and we honored and celebrated our donor heroes across the region. Now sliding into May, we extend our gratitude to nurses and teachers, Happy National Nurses Week, National Transplant Nurses Week, and National Teacher Appreciation Week!  Episode Highlights: Life Center partnered with Hospitals across the region to honor donors, healthcare teams, and recipients.  They also celebrated the donor heroes from 2022 with the Anual Donor Family Recognition ceremony. Life Center also partnered with the Center For Closing the Health Gap to discuss generational health and the Black Community at the Annual Health Expo A partnership with the Cincinnati Reds also kicked off by honoring a donor hero  Sliding into May, we extend our gratitude to nurses and teachers, Happy National Nurses Week, National Transplant Nurses Week, and National Teacher Appreciation week!  103,871 Men, Women, and Children need life-saving organ transplants, and 21 people will die because what they need isn't available. Learn the importance of registering to be a donor, and why it matters!   3 Key Points: Life Center partnered across the Region to honor and celebrate donors, healthcare teams, and recipients. May will be a month of gratitude towards Nurses and Teachers! We must learn the importance of registering as a donor, why it matters, and the truth about organ donation.  Tweetable Quotes: “Today, 103,871 Men, Women, and Children need life-saving organ transplants, and 21 people will die because the organ they need isn't available.” - Andi “Take a moment to learn why donation matters, and why registering to be a donor absolutely matters.” - Andi Resources: https://lifepassiton.org/ https://lifepassiton.org/board-of-directors-leadership/ https://www.facebook.com/LifeCenterOH https://www.youtube.com/user/LifeCenterOH https://aopo.org/

On this episode of This Thing Called Life, Andi Johnson speaks with Aimee Cordrey. She will be sharing the gift of life that her son, Nicholas has given to many recipients and how influenced others to do the same. She will also be reflecting some light upon the life of her son and sharing her story of grief and pathway to healing. Tune in now for this special story. Episode Highlights:  Aimee Cordrey is married to Darren Cordray. They have been married for over 20 years and been together for a little bit longer than that. They met in college, and they have two sons Richard, a 19 year old, and Nick, who would be 17, but he is forever 15. Both of them are athletes, very different yet very similar in their interests and just how they approach life. In the middle of the pandemic Aimee and her family had been quarantined like everyone else for quite some time. School had just ended. Nick had just finished freshman year of high school and it was Memorial Day. Nick and Aimee went shopping that day to get some hamburgers and some vegetables and different things to grill out. Nick hadn't seen his friends because of quarantine. Aimee allowed him to go meet some of his friends at a local ice cream shop that was within walking distance of their house because one of his best friends was leaving for vacation the next day and she was going to be gone for two weeks. Nick decided to take a shower at night. All of a sudden Aimee heard the water go on and then they heard some really heavy, intense breathing, they were shocked. They thought it was our other son Richard, playing video games. She went to the basement, but it was not Richard, it was Nick. Nick loved life and he approached everything with this attitude of – "I can do it." His family really believed he was going to be okay and pull through. Aimee explains how and when they went about the conversation of Nick being an orgn donor. The hospital staff acknowledged all the protocols that they have in place, and they contacted Life Center. Nick had not yet been able to get his temps. He would have been eligible for them. The month that everything happened, he had actually registered as an organ donor. The letter that Aimee received said that Nick saved five people with seven organs, and probably impacted 40 to 50 others. The only thing Nick was unable to donate was his intestines, which they initially believed he was going to be able to do until they started doing the surgery. Aimee shares her thoughts on what it all meant to her, Darren and Richard to know that Nick helped so many people by donating his organs.  “Learning that sometimes bad things happen to good people and learning to be ok with that and it is not even being ok with it, it's just accepting it- that is one piece of it. The donation piece brings that pride.” -Aimee Aimee thinks that being able to talk about organ donation enables her to talk about Nick.  Andi feels like Aimee is doing so much just to help people understand the magnitude of the donation and its impact. Andi asks Aimee about the project that she is working on at his school in his honor.  One of Nick's friends, Grayson, started a change.org petition. He wanted to have the school board name the soccer field after Nick. There isn't a lesson here when it comes to losing a son. The only lesson that Aimee has learned is that bad things happen to good people, and she has learned that when you encounter a loss like this you integrate it into your life, you don't overcome it. Grief is something that has stages and some stages may be re-visited at times. It is ongoing. Nick loved everything. All of the time he was researching,  reading to understand deeply, caring deeply, everything was with passion, everything was with full intent. He didn't do anything without truly caring about it. If he was gonna do it, he was doing it 100% all in and that's what Nick was, and he is. 3 Key Points: Nick had a brain aneurysm that his family didn't know about. Nick did not complain of a headache that day. He didn't have any signs of anything that day. He had an amazing day, and it was that quick. They called 911. They were very quick, they took him to the hospital, his aneurysm ruptured three times. At the hospital, they did surgery on him and for 9 days his family thought Nick was going to make it.  Aimee tells the listeners how Nick was able to help other people through the gift of life that he was able to give.  Each one of us is different. Unique as people, Aimee thinks everyone's grief is very unique. She needed to be around other people. Aimee thinks that the donor family council is amazing. They are a source of strength. They are unshakable.   Resources Mentioned: LifeCenter | Website | Facebook | Instagram | YouTube|  Twitter Andi Johnson  website |LinkedIn  Organ Donation Website    

Episode 74: The Incredible Journey Of Receiving A Kidney On this episode of This Thing Called Life, Andi is going to talk to Marty and Bonnie Garneret. Bonnie is not only Marty's wife but his kidney champion also. Marty and his wife have been married for 41 years this month, and he says that has married an angel without wings. He shares his special journey; You don't want to miss it!   Episode Highlights:  There are two types of diabetes, type one, which you are born with, and in that, your body does not produce any insulin, so you are on insulin shots from the time you are born. The second type comes from heredity, bad eating, lack of exercise, or all the bad stuff you do - lifestyle factors. If the doctor says you are prediabetic, that means your sugar is running high regularly, and it is destroying your body. So, you need to get to a specialist or endocrinologist. It is not a disease to be taken lightly because it leads to chronic kidney disease, which Marty has. If you don't pay enough attention to it, then you are graded on a scale of stage one to stage five transplant material, and that is where Marty is at 70 years of age.  When you first start out with  kidney disease, you are one of about 100 to 150,000 people on a list of possible recipients. Marty is lucky enough to meet a gal named Darcy Gibson, who has a foundation, a charitable organization, called Off The List, inc. To go through initial testing is a rigorous process. There are three different people you meet with. One is a social worker to check your mental capacity, the second is a nutritionist to manage your diet, and the third is a team of doctors and nurses that help you through tests. To get off the list, you have to receive a donor's kidney, and Bonnie has done this through Facebook, through yard signs, emails, and extensive, unbelievable work this woman has done on Marty's behalf. The list that Marty is talking about is a list to receive a deceased donor kidney. To get a living donor kidney, you must find someone willing to donate, a friend, a relative, or just a generous donor, and it is tough. It is a completely anonymous process, as someone is tested on your behalf. You would never know that because hospitals take that very seriously, and they want to ensure that the person who is doing this wants to do it for the right reasons and that there is no sense of pressure. Bonnie decided that UPPO would be perfect because people would have to ask a question and start the conversation. What is UPPO, or who is UPPO? Life for UPPO is a Facebook page, and we are working with Christ Hospital, and Trisha is the donor coordinator. The typical diabetic signs that Marty paid no attention to was he slept 12 hours and felt like he didn't sleep 5 minutes. He drank unbelievable amounts of liquid, whether it be coffee, pop, water, and he lost a lot of weight. The diet you have to be on when looking for a kidney is extremely difficult. There are many things to avoid and take care of. There are two categories of people when it comes to the conversation about being a living donor. We need to do a better job of filling the gap of information and helping people understand this is something they can do. Children's hospitals prefer to give it to children, and they should. But if something happened and there aren't any children who would need it, then the adult on that list would receive a kidney. One of Marty's dreams has always been that he would like to start in Maine and eat lobster all the way down the East Coast until they have to get an oversized bus to take him home. Marty looks good on the outside, but he's not good on the inside, and that's what a lot of people don't understand because he looks great. But they don't understand that the kidney function is still going down, and you can't see that. If people understood how grateful recipients were, it would cause a lot more people to donate because they are heroes and become angels without wings. Bonnie has read a lot on the national kidney Instagram page and other places that donors live longer than people who have not donated.   3 Key Points: Marty and Bonnie tell the listeners about the Facebook page they set up for people. The Facebook page is called life for UPPO. UPPO is Marty just because their oldest grandson when he was very young, can't say Grandpa, and he came out with UPPO. Marty doesn't think people understand how serious this disease is, and it will kill you. Many thousands of people die every day from kidney failure, and several things work against you. Marty and Bonnie talk about the misconception surrounding kidney donation.    Resources Mentioned: LifeCenter | Website | Facebook | Instagram | YouTube|  Twitter Andi Johnson  website |LinkedIn  Organ Donation Website https://www.facebook.com/life4uppo Tricia Monson Christ Hospital Donor Coordinator 513-585-1440 Marty and Bonnie Garneret Off the list inc, Darci Gibson

On this episode of This Thing Called Life Podcast, host Andi Johnson is going to talk to Shelly Sherman and Stephanie Jackson. They are discussing kidney health and an exciting new project that is being launched to shed light on kidney disease as well as prevention. No doctor or medical expert will kill you for your organs; In fact, no medical professional is aware of your donor status until your death is declared. Tune in for more information! Episode Highlights:    Host Andi Johnson has a few big asks. Will you join us and be a part of this interconnected life sustaining community by registering to be an organ, eye, and tissue donor? Will you make the commitment to become more educated about living donation and championing the donation cause? Shelly is associated with the Cincinnati, Ohito chapter of The Links, Incorporated and she served as the Health and Human Services Facet Committee chair. The Ohio central chapter was granted an award by Baxter International for increasing the awareness of kidney health in the communities in which Shelly lives and primarily in the African American community. What is GFR? Shelly has been working hard in the community to make sure people know where they are regarding their GFR, which lets them know how well their kidneys are functioning and what they can do to maintain kidney health. The Links organization was founded in 1946 on the premise of friendship, and Shelly wants to uplift and elevate people by providing health information. Stephanie and Shelly first met through collaboration with The Center For Closing the Health Gap.  Shelly had goals in mind based on the grant they received regarding the number of people that they needed to touch and the number of community partnerships that they needed to do. Shelly and Stephaine share the experiences they have had with training sessions and connecting in the community. They hope people will continue to listen to the podcast and continue doing some things and spreading the word in their communities. When people are ill, you can see it on their skin and eyes. You can notice the effects of kidney and liver illness on the skin and other body systems. Garlic is great for decreasing inflammation; It has Vitamin C, Vitamin B6, and Manganese, a great alternative for your seasoning. If you want to decrease your psyllium, you can add more garlic, which is great for your heart and your kidney. The one thing is to avoid canned and packaged chicken breast because those can contain sodium and other preservatives. Raising awareness and making small changes goes such a long way in promoting healthier lifestyles. There is a great ripple effect too when you share information like this with those in your family and circles.  3 Key Points: Blueberries are an important food for kidney patients. They serve as antioxidants and are very good for healing. In addition, they help your body to increase urination. People talk about dialysis and transplant, and these are things that you want to avoid. By opting for a healthier lifestyle and changes in the food you eat, you can do that.  There are so many ways you can just move your body, and Stephanie always tells people 15 to 20 minutes is sufficient. Make sure that your body is doing something that it doesn't do every day. Tweetable Quotes: “Whatever we are putting in our body, the body is going to use, and if we don't put in things that our body can use, then our body is not going to be able to function the way it's supposed to.” – Stephaine “Your body does need fat but only healthy fats because it helps everything stay lubricated and work well in all facets.” – Stephaine “So much of what happens to us is preventable, and a lot of it is due to a lack of information that is sometimes missed in our community.” – Shelly “Sometimes, we do have a mistrust of the medical systems, and we don't get some of the information that we need to have, but we can share it and start to educate each other.” - Shelly   Resources Mentioned: LifeCenter | Website | Facebook | Instagram | YouTube|  Twitter Andi Johnson  website |LinkedIn  Organ Donation Website https://www.cincinnatilinks.org/black-kare-initiative https://www.facebook.com/CincinnatiLinks https://www.instagram.com/cincinnatilinks/ https://www.yoursweetestlife.com/ https://www.facebook.com/yoursweetestlifewithstephaniej https://www.instagram.com/yoursweetestlifewithstephaniej/

Community Heroes is a special extension of This Thing Called Life's podcast. In this series we talk to community leaders, share important information about organ and tissue donation and honor those who have been instrumental in saving lives through the gift of donation.   Resources: https://lifepassiton.org/ https://www.facebook.com/LifeCenterOH Life Center Phone # 513-558-5555

March is National Kidney Month. On this episode of This Thing Called Life, host Andi Johnson talks with Mike McConnell about kidney health and community outreach.         Resources: https://lifepassiton.org/ https://lifepassiton.org/board-of-directors-leadership/ https://www.facebook.com/LifeCenterOH https://www.youtube.com/user/LifeCenterOH https://aopo.org/

    Community Heroes is a special extension of This Thing Called Life's podcast. In this series we talk to community leaders, share important information about organ and tissue donation and honor those who have been instrumental in saving lives through the gift of donation.     Resources: https://lifepassiton.org/ https://www.facebook.com/LifeCenterOH https://www.instagram.com/lifecentercincy/ https://www.youtube.com/user/LifeCenterOH https://twitter.com/LifeCenterCincy