This Thing Called Life

EP 137: Reborn at 51: Jamie Mahaffey's Second Chance at Life   Episode Summary What does it mean to be reborn at 51?  In this powerful episode of This Thing Called Life, heart transplant recipient Jamie Mahaffey shares his extraordinary journey of survival, resilience, and purpose. After undergoing a heart transplant, the former athlete, coach, and Athletic Director at North College Hill City Schools discovered a renewed calling to lead with greater intention. Becoming a John Maxwell Coach inspired him to launch his own company focused on helping others achieve their goals and elevate their lives. Jamie's story is a masterclass in perseverance, perspective, and personal leadership—proof that you don't match the energy around you… You set the standard.      Episode Highlights Host Andi Johnson welcomes Jamie Mahaffey and invites him to share the health crisis that changed everything. On November 11, Jamie became lightheaded at work and was rushed to UC Hospital, where doctors discovered a serious infection in his LVAD (Left Ventricular Assist Device). Facing two life-altering options—replace the LVAD or undergo a heart transplant at Vanderbilt University—Jamie chose the transplant after prayer, reflection, and encouragement from trusted advisors. While driving to Vanderbilt on January 17, Jamie was shocked by his defibrillator 42 times, a harrowing moment that underscored the urgency of his condition. Within days of being upgraded to Status Level One on the transplant list, a donor heart became available. Surgery was scheduled for January 21. Jamie remained in a coma until January 24. When he awoke, he was reunited with his wife Robin and their children in an emotional and life-defining moment. Robin's meticulous advocacy and unwavering presence became a critical part of Jamie's survival and recovery. Jamie reflects on the deep gratitude he feels for his donor—and the profound awareness that his second chance came through another family's loss. A letter from the donor's mother became a pivotal moment, inspiring Jamie to move forward boldly in launching his leadership company. Post-transplant recovery included the unexpected amputation of his leg—an emotional and physical challenge Jamie describes as even harder than the transplant itself. Through faith, family support, and resilience, Jamie developed a renewed vision for his life centered on impact and purpose. He shares his journey to becoming a certified John Maxwell Coach and his vision of speaking, writing, and helping others live beyond their potential. Jamie emphasizes living with integrity, leading intentionally, and choosing purpose over comfort. Key Takeaways Adversity Clarifies Purpose Life-threatening challenges often strip away distractions and reveal what truly matters. Jamie's second chance forced him to reevaluate his priorities and commit fully to purposeful leadership. Leadership Starts With Personal Responsibility You don't match the energy around you—you set the standard. Jamie's story demonstrates that leadership is not about position, but about the example you choose to live daily. Gratitude Changes Everything Understanding that his new heart came at a great cost reshaped Jamie's perspective. Gratitude became fuel for impact, reminding him to live in a way that honors both the gift and the giver. Tweetable Quotes “So I had two weeks of tests. Everything you can imagine. You know dentists, too. That's another thing, if you don't take care of your teeth, that's an affection of your heart. So those appointments are important, something that I didn't do regularly.” Jamie Mahaffey  “My defibrillator shocked me 42 times. And so the cardiologist came down, and he was like, Okay, we have to admit him. And so that's when I stayed there. And on January 18, the doctor came in that morning, and he said, You go from level three to level one a. Level one is where you need a transplant. “ Jamie Mahaffey  “I was in a coma for five days because my heart wasn't initiating with my body.” Jamie Mahaffey  “God was giving me another opportunity to listen to him. It was a time. I mean, I was just always busy. I was a head coach and won state titles and played college ball and played overseas, and I was always moving, but I was always looking after other people as a man. We are fathers, and we take care of our house, and I was an ad, and I was a coach, I was a mentor, so I'm looking after everybody else but myself. And it was a time he was saying, it's your turn.” Jamie Mahaffey  “I know there's a purpose for me to just keep having people to not live off their potential, but pursue their destiny. And so that's why I teach a lot of kids. A lot of people are still in life, living off potential but not pursuing their destiny. “ Jamie Mahaffey  “Maxwell certification was a stepping stone to a vision. I always heard about myself, about being a motivational speaker, about writing books, about having normal eyesight in life.” Jamie Mahaffey  Resources: Donatelifeky.org https://getoffthelist.org/ https://www.networkforhope.org/ https://www.networkforhope.org/about-us/ https://www.networkforhope.org/stories-of-hope/ https://www.facebook.com/NetworkForHopeOPO https://www.youtube.com/@NetworkforHope. https://aopo.org/ RegisterMe.org/NetworkforHope

This episode of TTCL will feature an interview with Luis Santiago from NFH on La Mega. This monthly interview will inform the Spanish Community about Network For Hope and the incredible miracles that happen with Organ, Tissue, and Eye Donation. Resources: https://getoffthelist.org/ https://www.networkforhope.org/ https://www.networkforhope.org/about-us/ https://www.facebook.com/NetworkForHopeOPO https://aopo.org/ RegisterMe.org/NetworkforHope

This episode of TTCL will feature an interview with Luis Santiago from NFH on La Mega. This monthly interview will inform the Spanish Community about Network For Hope and the incredible miracles that happen with Organ, Tissue, and Eye Donation. Resources: https://getoffthelist.org/ https://www.networkforhope.org/ https://www.networkforhope.org/about-us/ https://www.facebook.com/NetworkForHopeOPO https://aopo.org/ RegisterMe.org/NetworkforHope

EP 134 Title:  Honoring the Gift of Life: Erica Randall's Journey with Network for Hope and Organ Donation   Episode Summary In this heartfelt episode, Erica Randall, Community Partnership and Events Manager at Network for Hope, shares her inspiring journey in building stronger communities and advocating for organ donation. Erica opens up about her role within the organization, highlighting the rewarding experience of organizing the annual Network for Hope Community Breakfast. But the conversation takes a deeply personal turn as Erica reflects on her family's connection to organ donation, including the passing of her cousin Jason, who became an organ donor after a tragic car accident, and her mother-in-law Gail, who gave the gift of sight through cornea donation. Erica also discusses the creation of the SODA (Student Organ Donation Advocates) chapter in Cincinnati, which has now grown to 7-8 thriving chapters, and her deep passion for honoring both donors and recipients. Tune in to hear about Erica's mission to spread awareness, inspire others, and make a lasting impact on the lives of those touched by organ donation.  Episode Highlights Erica Randall discusses her role at Network for Hope as the Community Partnerships and Events Manager, where she builds bridges between communities and the life-saving mission of donation. They recently held their annual breakfast event, themed “Voices of Hope,” where speakers reflected on the joy, resilience, and positivity of children and young adults impacted by donation. The event was visually brought to life through participants' paintings surrounding the word hope, creating a powerful representation of lived experiences. Andi and Erica highlight Keegan, a young boy waiting for a lung transplant whose optimism and enthusiasm inspired everyone in the room. Erica shared the story of Jaylynn, a cornea recipient who is now thriving as a high-school senior, illustrating how donation restores independence and possibility. Erica has spent nine years in the OPO field and is deeply committed to educating communities about how the donation process truly works. Erica shares how the loss of her cousin Jason, who became an organ donor after a fatal car accident at 23, introduced her to the world of donation. She reflects on more than a decade of donation support services, building meaningful relationships with donor families during their most vulnerable moments. Erica explains why specific medical questions are asked during tissue donation, emphasizing safety, ethics, and protection for recipients. Erica's mother-in-law Gail was diagnosed with liver cancer yet still became a cornea donor at age 66, restoring sight to two people in Saudi Arabia. Gail's story highlights the importance of educating the public that certain donations are still possible—even with active cancer diagnoses. Erica shares her work with the Student Organ Donation Advocates (SODA) chapter in Ohio, where over 550 students registered as donors. She emphasizes how today's teenagers are setting a powerful standard for social impact and advocacy. Andi thanks Erica for her transparency, leadership, and dedication to sharing knowledge that empowers informed decisions about donation. Key Takeaways Education dispels fear. Accurate, compassionate education helps families and communities understand donation and make informed decisions rooted in truth—not misinformation. Hope has many voices. From children waiting for transplants to recipients thriving years later, each story demonstrates the ripple effect of donation. Legacy lives on through giving. Personal loss, like Erica's experience with her cousin Jason, can transform grief into purpose and lifelong advocacy. Tweetable Quotes “​​So our theme is voices of hope. And we did feature children and young adults. And I liked that idea because I wanted to show people it's not just adults who go through this. It does impact, you know, children at birth, or it does impact children very young age.” - Erica Randall   “So Jalen scratched her cornea when she was two years old and had to receive a cornea transplant. She is now a senior in high school in cosmetology. I'm so proud of her, and she is a signed professional Fisher woman. Oh, my God, and to see her just thrive all because of a cornea transplant, and how her life, I mean, she could be 17 years old with no eye, or she could have no vision.” - Erical Randall   “At 23 years old, he (Jason, Erica's cousin)  became a superhero, and he was able to donate his heart, his liver, his kidneys, and he was a tissue donor. So that completely flipped our lives upside down, but introduced me to a world of donation I had no clue even existed.” - Erica Randall   “I think it's an honor to give them the chance to have that light that somebody gave me when Jason became a donor. It gave us some positivity to his death. It gave us some glimpse of hope, some light in our lives, and to give that, to pass that on to somebody else, to have that chance was a great privilege.” - Erica Randall   “She (Gail, Erica's Mother-in-Law) became a cornea donor at the age of 66 in her corneas, or in Saudi Arabia. So two people in Saudi Arabia have the gift of sight because of her. So, again, great moment here to educate people that can be cornea donors and have active cancer.” - Erica Randall   Resources: Donatelifeky.org https://getoffthelist.org/ https://www.networkforhope.org/ https://www.networkforhope.org/about-us/ https://www.networkforhope.org/stories-of-hope/ https://www.facebook.com/NetworkForHopeOPO https://www.youtube.com/@NetworkforHope. https://aopo.org/ RegisterMe.org/NetworkforHope

Title:  EP 133:  “Walking by Faith: Maria's Story of Survival and Purpose”

This episode of TTCL will feature an interview with Luis Santiago from NFH on La Mega. This monthly interview will inform the Spanish Community about Network For Hope and the incredible miracles that happen with Organ, Tissue, and Eye Donation. Resources: https://getoffthelist.org/ https://www.networkforhope.org/ https://www.networkforhope.org/about-us/ https://www.facebook.com/NetworkForHopeOPO https://aopo.org/ RegisterMe.org/NetworkforHope

Title:  EP 131:  “Three Hearts, One Journey:  The Massie Family's Journey with Alport Syndrome”   

Title:  “The Ripple Effect: Maggie Luken's Journey of Loss, Love, and Life”  

This episode of TTCL will feature an interview with Luis Santiago from NFH on La Mega. This monthly interview will inform the Spanish Community about Network For Hope and the incredible miracles that happen with Organ, Tissue, and Eye Donation. Resources: https://getoffthelist.org/ https://www.networkforhope.org/ https://www.networkforhope.org/about-us/ https://www.facebook.com/NetworkForHopeOPO https://aopo.org/ RegisterMe.org/NetworkforHope

Title:  "Meeting My Kidney Sister: Sarah Green-Moore's Story of Healing and Purpose"    

Title: "Legacy in Life and Loss: Adria Johnson on Her Son's Gift of Hope"  

Title: Twice Gifted: Beth Otto's Journey As a  2 Time Kidney Recipient  

This episode of TTCL will feature an interview with Luis Santiago from NFH on La Mega. This monthly interview will inform the Spanish Community about Network For Hope and the incredible miracles that happen with Organ, Tissue, and Eye Donation. Resources: https://getoffthelist.org/ https://www.networkforhope.org/ https://www.networkforhope.org/about-us/ https://www.facebook.com/NetworkForHopeOPO https://aopo.org/ RegisterMe.org/NetworkforHope

Title: One Family, Three Transplant Journeys: Life with Alport Syndrome  

"Full Circle: Interview with Markeyah Lewis on Life, Lupus, and the Gift of a Kidney"   Markeyah Lewis was diagnosed with Lupus, leading to early kidney failure. When her mother wasn't a direct transplant match, they turned to Advanced Kidney Donation—a life-changing decision that helped Markeyah receive her transplant in 2022. Now a mother and soon-to-be Doctor of Occupational Therapy, Markeyah shares her powerful story of resilience, motherhood, and the miracle of second chances.   ✨ Episode Highlights Andi introduces Markeyah Lewis and invites her to reflect on how they first met four years ago, during her battle with lupus. Markeyah shares her inspiring story of resilience and hope amid life-altering circumstances. She describes undergoing hemodialysis during her senior year of college. Her mother, although not a direct donor match, was determined to help. Markeyah explains how Advanced Kidney Donation allowed her mother to donate to another person—making Markeyah a priority on the transplant list. In 2022, her mother donated a kidney to a stranger named Charlie, with whom they still keep in touch. Andi and Markeyah discuss the importance of honoring the gift of life after a transplant. Markeyah offers heartfelt advice for those battling chronic illness, emphasizing the importance of a strong support system. They explore the role of faith in navigating health struggles and finding purpose. Markeyah shares her deep gratitude for her mother's selfless act. She opens up about her pregnancy journey, which was unexpectedly smooth despite the risks associated with lupus and kidney disease. Markeyah also details her mother's donation journey and her current health. She expresses thanks to their medical team and looks forward to becoming an occupational therapist. The episode concludes with Markeyah reflecting on her first Mother's Day.

This episode of TTCL will feature an interview with Luis Santiago from NFH on La Mega. This monthly interview will inform the Spanish Community about Network For Hope and the incredible miracles that happen with Organ, Tissue, and Eye Donation. Resources: https://getoffthelist.org/ https://www.networkforhope.org/ https://www.networkforhope.org/about-us/ https://www.facebook.com/NetworkForHopeOPO https://aopo.org/ RegisterMe.org/NetworkforHope

Title: "The Gift of Life: A Conversation with Dr. Alex Ancheta, Transplant Surgeon"  

This episode of TTCL will feature an interview with Luis Santiago from NFH on La Mega. This monthly interview will inform the Spanish Community about Network For Hope and the incredible miracles that happen with Organ, Tissue, and Eye Donation. Resources: https://getoffthelist.org/ https://www.networkforhope.org/ https://www.networkforhope.org/about-us/ https://www.facebook.com/NetworkForHopeOPO https://aopo.org/ RegisterMe.org/NetworkforHope

Title: "Bridging the Gap: The Power of Organ Donation in Kentucky"  

This episode of TTCL will feature an interview with Luis Santiago on La Mega. This monthly interview will inform the Spanish Community about Network For Hope and the incredible miracles that happen with Organ, Tissue, and Eye Donation. Resources: https://getoffthelist.org/ https://www.networkforhope.org/ https://www.networkforhope.org/about-us/ https://www.facebook.com/NetworkForHopeOPO https://aopo.org/

Episode Summary In this heartfelt episode, we sit down with Gretchen Starnes, Family Aftercare Manager with Network for Hope (Louisville), an organization that also supports families after the loss of a loved one through organ donation. Gretchen shares the deeply human side of her work—walking with families through the grief process, offering comfort, connection, and compassion in the wake of profound loss. We explore how the gift of life through donation can bring a measure of hope to unimaginable sorrow, and how Gretchen and her team help families navigate that journey with care and grace. ✨ Episode Highlights Gretchen Starnes discusses her role as a Family Aftercare Manager at Network for Hope. She describes the Aftercare Department's mission to support donor families and ensure their needs are met with compassion and understanding. Gretchen shares her personal journey, beginning as a Family Support Worker and transitioning to Aftercare, highlighting the critical role of empathy in her work. She reflects on working with grief and the full spectrum of emotions that come with it, reminding us: “There's nothing wrong with you when you're grieving.” Andi asks Gretchen about the myths and misconceptions surrounding grief and bereavement support. Gretchen explains that support systems often fade after the first year of loss and shares her experience that, for many, the second year is even harder. The organization offers 15 months of ongoing support through mailings, in-person meetings, and online resources. Families find healing and comfort in sharing stories, memories, and legacies of their loved ones. Donor families play a vital role in encouraging and supporting newly bereaved families through direct connections. Gretchen talks about the emotional challenges donor families face when reaching out to donor recipients and how the organization offers guidance through that process. They reflect on the powerful impact of the Holiday Honor Walk, which brings donor families together to foster connection, support, and healing. Gretchen emphasizes the importance of saving lives through organ donation and the value of being surrounded by a strong, supportive community. She also highlights the importance of self-care, a healthy team environment, and emotional support to navigate the difficulties inherent in this deeply meaningful work.

Episode Summary In this powerful episode, we sit down with Jon and Felicia Rohman to share the remarkable journey of their daughter Hadlee, who underwent a life-saving heart transplant in 2020—right amid a global pandemic. What began as a terrifying health issue became a testimony of faith, resilience, and appreciation for the incredible gift of life. Years later, Hadlee is thriving, healthy, joyful, and full of gratitude. Join us as Andi Johnson interviews the Rohmans, who open up about their challenges, the community that rallied around them, and the beautiful, beating heart of their daughter's second chance at life.   ✨ Episode Highlights Andi Johnson welcomes Jon and Felicia Rohman, a husband-and-wife team and proud parents of four. The conversation centers around Hadlee, their third child, who was born with hypoplastic left heart syndrome. Felicia recounts Hadlee's birth in 2017 and the significant right-sided heart failure she experienced by late 2019, which made organ donation the only viable option. Jon discusses the mental and emotional preparation required as they faced the reality of a potential heart transplant. The couple acted quickly, getting Hadlee placed on the transplant list in January 2020. She received her new heart on May 28, 2020—coincidentally, their son's birthday. Jon reflects on the emotional toll of the process, including a failed donation and navigating the challenges brought on by the COVID-19 pandemic. Felicia shares the complexity of maintaining infection control while managing the needs of their other children. During this time, Jon resigned from his job to be with Hadlee full-time at the hospital. Jon honors Felicia's strength as she worked two jobs—80 hours a week—while homeschooling and caring for their children at home amid the pandemic. Today, Hadlee is flourishing with a new baby sister and enjoys activities such as swimming, soccer, and dancing. The Rohmans express deep gratitude to the donor family, highlighting the life-changing impact of the transplant. Felicia reflects on how their faith sustained them through hardship and the emotional conversations they had with their children. The couple emphasizes the vital importance of organ donation and the hope it brings to families in need. Jon encourages other families to lean into their communities and be open to receiving help. They also speak to the power of social media in spreading Hadlee's story and building a network of support. The Rohmans express appreciation for organizations such as Donate Life and Network For Hope for amplifying their journey and giving them a platform to share.

Episode Summary In this inspiring episode, Zach Wells a TV sports anchor shares his incredible journey of receiving a kidney donation from his brother. Zach opens up about the unexpected news that his kidney was failing and the challenges he faced battling kidney disease, and the profound lessons he learned about hope, resilience, and the importance of prioritizing health. Tune in as Zach offers a raw and honest conversation about overcoming adversity and the power of family, health, and seizing the moment.     Episode Highlights Zach Wells was diagnosed with kidney disease in 2007 and experienced a gradual decline in kidney function before receiving a transplant in 2018. He recalls the moment he first learned something was wrong—his wife left him a message from a business trip, urging him to check his test results after his doctor raised concerns about his creatinine levels. Determined to manage his condition, Zach relied on diet, exercise, and medication but ultimately knew that a transplant was the best path forward. Before his diagnosis, Zach was a self-proclaimed workaholic, often neglecting his health in favor of his career. He later realized that without prioritizing his well-being, his time was limited. He reflects on the physical toll of kidney disease—the fatigue, nausea, and other symptoms—while balancing parenthood and work responsibilities. Throughout his journey, Zach found unwavering support from his wife, Caroline, and his family, which made all the difference. His brother turned out to be a perfect donor match, bringing renewed hope and gratitude. Zach discusses the emotional and physical impact of his illness, the dedication of his medical team, and the perspective he gained through this experience. Inspired by Zach's story, Andi sheds light on the kidney transplant crisis and the need for greater awareness about living donors. Prospective donors undergo rigorous screening, but their generosity can transform the lives of over 100,000 people currently on the transplant waitlist. When asked for advice to men facing kidney disease or dialysis, Zach encourages them to stay present, be patient, and stay committed to their medical care and fitness routines. He highlights the importance of hope, scientific advancements, and the skilled professionals who make transplants possible. Zach expresses deep gratitude for his transplant surgeon, doctors, and everyone who played a role in his recovery.   Key Takeaways Zach's journey with kidney disease began in 2007, leading to a transplant in 2018. His initial reluctance to seek medical care due to work commitments taught him a valuable lesson about balance and self-care. The support of his family, medical team, and a generous kidney donation from his brother gave him a second chance at life. He now finds joy in the little things and is committed to raising awareness about kidney disease and transplantation. Tweetable Quotes:   “So about managing the disease, doing everything I could to be as healthy as I could, drink as much water as I could, have the best diet that I possibly could, knowing that probably the chances of this reversing, the chances of this having a better outcome, were not going to be a very high so it's a long road.” - Zach Wells “I think transplants really reward the patient. They reward the dutiful, they reward the optimistic.” - Zach Wells “I was a workaholic. All I thought about was work. And I thought that I can't deal with this or go to the doctor, because that's going to interfere with my work schedule. But I learned very quickly that if I didn't get balance and prioritize this as another full-time job, that I wasn't going to be around very long.” - Zach Wells “I was not feeling well at all. I was run down. I had like, bags under my eyes. I would randomly sweat, I felt nauseous.” - Zach Wells “I think that that's one of the many areas where I've been so lucky, is just having an incredible support network of people that have really helped me. That's amazing.” - Zach Wells “What I want to do is, like, really draw attention to the fact that this is an incredibly solvable problem. Yes, like the people that are waiting, like, the waiting list is over 100,000.” - Zach Wells Resources: https://getoffthelist.org/ https://www.networkforhope.org/ https://www.networkforhope.org/about-us/ https://www.facebook.com/NetworkForHopeOPO https://www.youtube.com/@NetworkforHope. https://aopo.org/

Episode Summary In this episode of This Thing Called Life, Andi Johnson interviews Means Cameron, a successful entrepreneur from Cincinnati and the founder of the clothing brand BlaCkOWned™ Outerwear. Means shares the inspiration behind launching BlaCkOWned™ Outerwear in 2011, influenced by his cultural experiences and the importance of representation. He discusses the significance of community ownership, legacy, and his personal connection to organ donation. Cameron highlights the impact of organ donors on his friends' lives, including a fraternity brother who received a kidney transplant. He also addresses common misconceptions about organ donation within the Black community, emphasizing the need for education, trust, and personal storytelling to make the topic more relatable. The discussion underscores the power of local narratives in raising awareness about organ donation and encourages open conversations within families and communities. Episode Highlights Origins of BlaCkOWned™ Outerwear: Means Cameron shares how the brand was born out of his desire to embrace identity, cultural heritage, and community pride. Meaning Behind the Brand Name: "BlaCkOWned™ wasn't just about a Black-owned business—it was about owning who we are as a people, our culture." Legacy and Impact: Means expresses his vision for his legacy: "Fostering Black creativity and dialogue, and showing people they have options." Connection to Organ Donation: Means discusses his personal experiences with organ donation, including friends and family members who have received transplants. He highlights the challenges of mistrust and misinformation about organ donation in the Black community. Addressing Misconceptions: Many individuals fear that becoming an organ donor could put their lives at risk in medical settings. In reality, only 1% of registered organ donors pass in a way that allows for organ donation, while thousands remain on transplant waiting lists. The Importance of Storytelling: Means emphasizes the need to humanize the organ donation process by sharing real-life experiences to build trust and awareness. Encouraging Open Dialogue: Andi asks Means how he would approach someone hesitant about organ donation. Means stresses the importance of respecting different perspectives while sharing personal experiences to help others make informed decisions. Final Reflections: Andi expresses gratitude for the meaningful discussion and appreciates Means' insights on business, legacy, and organ donation advocacy.   Key Takeaways: Means Cameron's journey as an entrepreneur reflects his deep commitment to identity, community, and legacy.  His personal experiences with organ donation have fueled his advocacy for increasing awareness and addressing misconceptions. Andi and Means then dig deeper into educating ourselves and others about how organ donation can help address mistrust and save lives and the importance of humanizing the organ donation process by sharing personal stories and the faces who make it more relatable and trustworthy. Tweetable Quotes:   “Cincinnati needed something for the culture, something that spoke to our culture, to give us something to be proud about, to speak about our heritage, and for not to just be in private rooms, but for us to be able to take it out into the world. “ - Means Cameron “So the idea of BlaCkOWned™ came out of me, wanting to have ownership of who I am and never losing it.” - Means Cameron “And so BlaCkOWned™ wasn't just about a black-owned business. It was about owning who we are as a people, our culture and the name black owned, just came to me. “ - Means Cameron “One of the most challenging things in our community is that we believe that if we become organ donors, that someone is going to take our organs if we ever are sick or in a doctor's bed and our life is on the line.” - Means Cameron “ I guess the best thing I can do for anyone that is on the fence is just to share with them my own experiences. “ - Means Cameron Resources: https://getoffthelist.org/ https://www.networkforhope.org/ https://www.networkforhope.org/about-us/ https://www.facebook.com/NetworkForHopeOPO https://www.youtube.com/@NetworkforHope. https://aopo.org/

This episode of TTCL will feature an interview with Luis Santiago on La Mega. This monthly interview will inform the Spanish Community about Network For Hope and the incredible miracles that happen with Organ, Tissue, and Eye Donation. Resources: https://getoffthelist.org/ https://www.networkforhope.org/ https://www.networkforhope.org/about-us/ https://www.facebook.com/NetworkForHopeOPO https://aopo.org/

In this episode of This Thing Called Life, Andi Johnson sits down with Joel Chase, Vice President of Organ Services at Network for Hope, to discuss his role and how it has evolved following a recent merger. Joel shares insights into the integration of two smaller Organ Procurement Organizations (OPOs) into Network for Hope, the strategic changes that followed, and how he is leading a growing team. Joel walks through the organ donation process, from the initial referral to organ recovery, emphasizing the importance of supporting donor families, transplant recipients, and OPO staff who navigate these complex and life-changing moments. He also reflects on his career journey, the challenges of balancing leadership with personal life, and the impact of medical advancements on the field of organ donation.   Episode Highlights: Joel's Role & the Organ Donation Process: He oversees the entire donation process, from organ referral and evaluation to allocation and recovery. Navigating Growth Post-Merger: The transition from 32 full-time employees at Legacy Life Center to over 90 at Network for Hope has required new leadership strategies. Evolving Case Timelines: The duration of cases has expanded from 24 to over 50 hours, depending on testing and logistical challenges. What Drives Joel: He is motivated by mission-driven work, helping people, and witnessing his team's success. Biggest Leadership Challenge: Time management in an organization that never stops and balancing work with family life. Leadership Philosophy: Leading with openness, support, and grace while prioritizing an inclusive leadership style. Memorable Moments: Joel shares a powerful story of how a leader's critical decision helped save three lives, a defining learning experience in his career. Public Awareness: He encourages open conversations about organ donation with loved ones and addresses concerns from those hesitant to register. Key Takeaways: Leadership in Organ Donation: Joel shares insights into leading a non-profit OPO, managing growth, and the importance of learning through challenges ("failing forward"). The Organ Donation Process: Understanding how OPOs evaluate, allocate, and recover organs while collaborating with hospitals to ensure successful transplants. Encouraging Public Awareness: Addressing misconceptions about organ donation and why open conversations with family are essential. Tweetable Quotes:   “I've always been fascinated with medicine, so you get to kind of play nurse or doctor without necessarily having to have the license. So I thought that that was just a great, intriguing career.” - Joel Chase “We are there to help facilitate, to make donation happen in the best way possible, and in these 24 hour shifts that a lot of the team members are working and all the things that they're doing, it's very hard to expect perfection when a lot of staff want to do their best all the time, and it's just not possible. We're all humans, and we have to have some grace for each other too.” - Joel Chase “I think that we should learn from our experiences, whether they're good or bad. If we don't learn from them, then I think that's more of a failure. Otherwise, it's an opportunity to improve and do better the next time. So I definitely like that mindset, and it kind of ties into knowing that we're not perfect people, and I don't think we're ever going to have a perfect A to Z case” - Joel Chase “It's the OPOs job to evaluate the patient's medical record and their current clinical condition for organ donation potential. A lot of times that could mean that the patient ends up surviving their injury, and they go through the rehabilitation process” - Joel Chase Resources: https://getoffthelist.org/ https://www.networkforhope.org/ https://www.networkforhope.org/about-us/ https://www.facebook.com/NetworkForHopeOPO https://www.youtube.com/@NetworkforHope. https://aopo.org/

This episode of TTCL will feature an interview with Julie Luebbers on La Mega. This monthly interview will inform the Spanish Community about Network For Hope and the incredible miracles that happen with Organ, Tissue, and Eye Donation. Resources: https://getoffthelist.org/ https://www.networkforhope.org/ https://www.networkforhope.org/about-us/ https://www.facebook.com/NetworkForHopeOPO https://aopo.org/

Community Heroes is a special extension of This Thing Called Life's podcast. In this series, we talk to community leaders, share important information about organ and tissue donation, and honor those who have been instrumental in saving lives through the gift of donation.  In this episode, we talk with Lincoln Ware from WDBZ the Buzz of Cincinnati talk station. Resources https://registerme.org/ https://getoffthelist.org/ https://www.networkforhope.org/ https://www.networkforhope.org/about-us/ https://www.facebook.com/NetworkForHopeOPO https://www.youtube.com/@NetworkforHope. https://aopo.org/

Community Heroes is a special extension of This Thing Called Life's podcast. In this series, we talk to community leaders, share important information about organ and tissue donation, and honor those who have been instrumental in saving lives through the gift of donation.  In this episode, we talk with Don Juan from 100.3 FM Cincy's R&B station in Cincinnati. Resources https://registerme.org/ https://getoffthelist.org/ https://www.networkforhope.org/ https://www.networkforhope.org/about-us/ https://www.facebook.com/NetworkForHopeOPO https://www.youtube.com/@NetworkforHope. https://aopo.org/

Episode 106: The Donation Coordinator's Responsibility within the Donation Process of the Organ Procurement Organization, with Christienne King   During this episode of This Thing Called Life, host Andi Johnson talks about the donation process from the OPO (Organ Procurement Organization) lens. This week, Andi is speaking with Christenne King. She is the Senior Donation Coordinator. She meets family in very difficult times. Tune in to hear about her experiences as it relates to the important process of organ donation.  Episode Highlights:  Many people believe that organ, eye, and tissue donation is just a service of the hospital but Andi shares how it is much bigger than that and requires the collaboration of many. Christenne has been with the Life Center for over 20 years and is currently the Senior Donation Coordinator. She explains her role as one of the individuals who handles the evaluation, medical management, organ placement, and logistics of the operating room for an organ donation. Andi asks Christenne to share what kind of training and background is required to do work as she does. Christenne shares her personal experience with organ donation about her sister, Adrienne King who had epilepsy and cerebral palsy. What does brain dead mean? Christenne shares facts that listeners may not be aware of. She explains the difference between that and a vegetative state or coma. Organ donation and the education around it have grown significantly over the years.  Christenne explains her connection to Network For Hope and how meaningful it has been to her on several levels. Christenne put herself to paramedic school and applied as an organ coordinator. Andi asks Christenne how she prepares for her day and meeting with families in desperate times.  What happens at the bedside to evaluate potential organ donation? Christenne shares that some cases have changed her forever and how it has been a blessing. What goes into supporting the families who are in contact with them? Andi talks about how COVID-19 caused many people to reflect and seek more meaningful jobs. Andi asks Christenne to share what a typical workday looks like for a donation coordinator.  Logistics and time frames are very important in the process; Christenne explains. A lot of communication is required for this job because of the many pieces that must come together. An average case lasts about 72 hours so that the right thing is accomplished with the donor. Christenne talks about when organ gifts are placed in other locations. The donation coordinators are very passionate about giving each individual the best preservation options. Have you thought about registering to be a donor? Find out more at https://lifepassiton.org/ 3 Key Points Christenne shares her personal experience with organ donation when her sister, Adrienne King passed away and saved several other lives. Organ donation happens through the collaboration of many. Andi and Christenne talk through the organ coordinator role and the piece it is in the overall process. Emotional taxation is high in the role that Christenne has. She talks about the challenges, and blessings, and how she perseveres through them.    Tweetable Quotes: “Organ, eye, and tissue donation does not happen without collaboration.” -Andi “There are intricacies of this life-giving, life-saving process.” -Andi “When someone has been deemed as potential to help someone through donation, a donation coordinator will be onsite for 24 hours/day through the end of the process.” -Christenne “For those who do not know, when a person is declared brain dead, it is a legal pronouncement of death, it is the time that will go on their death certificate.” -Christenne “My sister was one of only 39 organ donors in Cincinnati in 1992. It was so rare.” -Christenne “Donation can have such a  positive effect on those that are donor families. “ -Christenne “This role requires you to be strong and sensitive to the fact that a family is going through the worst possible time.” -Andi “We are intimately involved with the families in the room and with the donors in the room, it is difficult.” -Christenne “Other than being a parent, this job is the most rewarding thing I will do in my life.” -Christenne Resources Mentioned: https://getoffthelist.org/ https://www.networkforhope.org/ https://www.networkforhope.org/about-us/ https://www.facebook.com/NetworkForHopeOPO

LifeCenter ahora es Network For Hope! (LifeCenter now is Network For Hope!) This episode of TTCL will feature an interview with Julie Luebbers on La Mega. This monthly interview will inform the Spanish Community about Network For Hope and the incredible miracles that happen with Organ, Eye, and Tissue Donation. Resources: https://getoffthelist.org/ https://www.networkforhope.org/ https://www.networkforhope.org/about-us/ https://www.facebook.com/NetworkForHopeOPO https://aopo.org/

A Transplant Surgeon's Journey To Help Others, with Dr Madison Cuffy During this episode of This Thing Called Life podcast, host Andi Johnson speaks with Dr. Madison Cuffy, an Associate Professor at UC Health. Dr. Cuffy has built trust-filled relationships with his transplant patients throughout the years and loves nothing more than to see them live their lives to the fullest after getting their transplant.   Episode Highlights:  Dr. Cuffy started his medical journey back in 2002 which led to a multi-organ  transplant fellowship at New York Presbyterian. Growing up in Brooklyn, Dr. Cuffy was first introduced to Cincinnati by Talib Kweli and Hi Tek. As a 14-year-old, Dr. Cuffy became interested in medicine while volunteering in a hospital cleaning instruments. Even to this day, no one in Dr. Cuffy's family has experience in medicine, nor any clue what a transplant surgeon does. Dr. Cuffy was born in the Caribbean and grew up with his great aunt in New York. One of the most common misconceptions surrounding organ donation is that the medical community will let you die. After being in transplant and seeing how one can help create life during a time of despair, Dr. Cuffy became an organ donor. The medical community is not out to harm organ donors in order to harvest their organs, contrary to popular belief. According to the statistics, on average, 22 people die every day waiting on an organ transplant. While most of his focus is on kidney transplants, Dr. Cuffy does work with all transplant organs. There is an access problem for people who need a kidney transplant and are on dialysis. Dr. Cuffy facilitates living kidney donation as the best option to treat end-stage renal disease. Andi has noticed that people of color tend to shy away from sharing their donation needs with other people. Socioeconomic issues and disadvantages can make it more difficult for certain patients to share their stories. People who don't want to share their stories need a donor champion to do it for them. There are different forms of literacy, so Dr. Cuffy makes sure his patients know that there is no stupid question. It's important for patients to speak up about their questions to their doctor so that they don't get misinformation from another source. If your physician is too busy to answer your questions now or in the future, you may need to find a different provider. Dr. Cuffy feels rewarded by his job when he sees his patients experiencing life after their transplant. His grandmother's advice was “Always be yourself”, even when things get tough, this message helps Dr Cuffy get through hard days. Raised without his parents in Brooklyn, Dr. Cuffy knows first hand that you can do anything you set your mind to. Dr. Cuffy has always had an extra gear that has allowed him to outwork everyone around him. When he goes back to Brooklyn now, Dr. Cuffy gets a different kind of respect from the people he grew up with. Dr. Cuffy thoroughly enjoys going to J. Alexanders in Cincinnati because of the sheer amount of professional African Americans that go there. 3 Key Points: While volunteering at a hospital with the hopes of staying off the streets as a 15-year-old boy, Dr. Cuffy had the opportunity to watch a kidney transplant up close, and that's how he chose the transplant route. Unlike in other cities that have multiple transplant programs with different surgeons, Cincinnati has a single transplant program where the doctors act as one unit. Living donor kidneys last anywhere from 15 to 20 years, recipients don't have to wait on a list to get one, and the quality is usually very good. Resources: https://www.networkforhope.org/ https://www.networkforhope.org/about-us/ https://www.facebook.com/NetworkForHopeOPO https://getoffthelist.org/ https://www.uchealth.com/en/transplant Dr Madison Cuffy  

Community Heroes is a special extension of This Thing Called Life's podcast. In this series, we talk to community leaders, share important information about organ, eye and tissue donation, and honor those who have been instrumental in saving lives through the gift of donation.  In this episode, we talk with Don Juan from 100.3 FM Cincy's R&B station in Cincinnati. Resources https://getoffthelist.org/ https://www.networkforhope.org/ https://www.networkforhope.org/about-us/ https://www.facebook.com/NetworkForHopeOPO

Community Heroes is a special extension of This Thing Called Life's podcast. In this series, we talk to community leaders, share important information about organ and tissue donation, and honor those who have been instrumental in saving lives through the gift of donation.  In this episode, we talk with Don Juan from 100.3 FM Cincy's R&B station in Cincinnati.   Resources https://getoffthelist.org/ https://www.networkforhope.org/ https://www.networkforhope.org/about-us/ https://www.facebook.com/NetworkForHopeOPO https://www.youtube.com/@NetworkforHope. https://aopo.org/

Welcome to today's episode of This Thing Called Life, where we delve into the ever-evolving care plan of organ, eye, and tissue donation. In this episode, we're joined by Andi Johnson and Dr. Jordan Bonomo to explore a key recommendation from the 2021 National Academies of Sciences, Engineering, and Medicine (NASEM) report aimed at transforming organ donation and transplantation practices to create a more equitable system. Dr. Bonomo shares insights into a groundbreaking initiative—the establishment of a donor care unit within UCMC's new Flex ICU. This innovative, first-of-its-kind model is designed to improve organ donation outcomes by providing comprehensive, compassionate care to both donors and their families. Tune in for this important conversation on enhancing the donor experience and advancing the future of organ donation.   Episode Highlights: Introducing Dr. Jordan Bonomo. He is a physician at the University of Cincinnati Medical Center. He's the Medical Director of the flex ICU and a professor of Emergency Medicine, neurology, neurosurgery, and neurocritical care. He is also the attending physician for anesthesia, critical care, and ECMO, and he's the medical director for donor management, for Network For Hope, formerly Life Center.  Dr. Bonomo explains the long-term development of the Flex ICU, emphasizing its multifaceted purpose to serve critically ill patients and enhance organ donation capacity. The Flex ICU aims to provide specialized care for organ donors, improving the yield and survival rate of donated organs. Specialized units can focus on the needs of the donor from a physiological standpoint and the needs of the family from an emotional standpoint. This aims to provide a much more synchronized environment and holistic care for the families and adhere to the donor wishes. All the staff are fully trained and they're vetted and vested at the same time in the process of donation.  The purpose is to have the best donor care unit available anywhere in the country. The unit is staffed 24/7 by dedicated teams to support the mission of Network for Hope. The unit is limited to donors who have been declared dead by neurologic criteria. Note that in the month of October, the first month of the launch of Flex ICU, there were zero patients declared brain dead in the region. Dr. Bonomo explains the intentional design of the unit to accommodate donor families, offering them the option to be with their loved ones or to step back as needed. The Flex ICU aims to respect the wishes of donors and families, facilitating their involvement in the donation process. Dr. Bonomo discusses the potential impact of the Flex ICU on organ donation The goal is to optimize the process for donors, families, and organ recipients, balancing the need for timely transplantation with the potential for increased donation. Andi adds that the DCU, which is housed within the flex ICU, has been discussed as a key part of the flex ICU with providers, nurses, and physicians who will be working in this unit. The team is committed to doing right by donors, recognizing the privilege and obligation that comes with their role. The Flex ICU has attracted dedicated professionals who are passionate about improving organ donation and transplantation. The process of establishing the unit has been lengthy, involving multiple stakeholders and legal considerations.  He shares that this is an organ procurement organization initiative that really is somewhat independent of the healthcare system. The belief that donation can bring healing and good from tragedy has been a driving force for Dr. Bonomo.  Dr. Bonomo has a strong foundation in bioethics, having earned his undergraduate degree in the field. Throughout his career, organ donation has been a central focus of his work in biomedical ethics. Dr. Bonomo invites listeners to ask questions and seek education about the organ donation process. The importance of accurate information and understanding the process is important for effective collaboration and support. 3 Key Points:   Dr. Bonomo explains the long-term development of the Flex ICU, emphasizing its multifaceted purpose to serve critically ill patients and enhance organ donation capacity. The Flex ICU aims to provide specialized care for organ donors, improving the yield and survival rate of donated organs. The unit is limited to donors who have been declared dead by neurologic criteria. So brain dead donors, and brain dead vernacular term death by neurologic criteria. Dr. Bonomo explains the intentional design of the unit to accommodate donor families, offering them the option to be with their loved ones or to step back as needed. The Flex ICU has attracted dedicated professionals who are passionate about improving organ donation and transplantation. The team is committed to doing right by donors, recognizing the privilege and obligation that comes with their role.   Tweetable Quotes: “Dr shutter explained to me that we do our best to save them, but when you can't, your obligation doesn't end, and the opportunity to donate is an absolute good when done well…” - Dr. Bonomo “So the the flex ICU has been in design and development for a really long time, I mean, north of 15 years, and we've had fits and starts, and we finally were able to construct it…” - Dr. Bonomo “We have teams that are dedicated to supporting the mission and network for hope, formerly Life Center…” - Dr. Bonomo “I think every family is interested in knowing that their loved one is well cared for and that their wishes are being respected.” - Dr. Bonomo Resources: https://getoffthelist.org/ https://www.networkforhope.org/ https://www.networkforhope.org/about-us/ https://www.facebook.com/NetworkForHopeOPO https://www.youtube.com/@NetworkforHope. https://aopo.org/

Community Heroes is a special extension of This Thing Called Life's podcast. In this series, we talk to community leaders, share important information about organ and tissue donation, and honor those who have been instrumental in saving lives through the gift of donation.  In this episode, we talk with Lincoln Ware from WDBZ the Buzz of Cincinnati talk station.   Resources: https://getoffthelist.org/ https://www.networkforhope.org/ https://www.networkforhope.org/about-us/ https://www.facebook.com/NetworkForHopeOPO https://www.youtube.com/@NetworkforHope. https://aopo.org/

Community Heroes is a special extension of This Thing Called Life's podcast. In this series, we talk to community leaders, share important information about Organ, Tissue, and Eye donation, and honor those who have been instrumental in saving lives through the gift of donation.   Resources: https://getoffthelist.org/ https://www.networkforhope.org/ https://www.networkforhope.org/about-us/ https://www.facebook.com/NetworkForHopeOPO https://www.youtube.com/@NetworkforHope. https://aopo.org/

Welcome to today's episode of This Thing Called Life, where we explore the evolving landscape of organ, tissue, and eye donation. Join us as we chat with Andi Johnson, featuring Jennie Wright, a double lung transplant recipient, and her daughter, Siri Imanin.  Jennie, diagnosed with sarcoidosis and pulmonary hypertension, waited a year to be listed for a transplant and another two years to receive the lungs. She recounts the challenges, including antibiotic-resistant infections and the emotional toll on her family. Siri shares how her mother's journey influenced her music and activism, emphasizing the importance of organ donation education in the Black community. They discuss the need for proactive health awareness and the impact of supportive networks on their recovery.   Episode Highlights: Andi Johnson introduces the mother-daughter duo Jennie Wright and Siri Imani, and asks Jennie to share her transplant journey Jennie shared that she had sarcoidosis, and as a result, her lungs were severely damaged, which caused pulmonary hypertension. So before the donation, she had a backpack that had oxygen and a fanny pack that had a heart pump. It took a year to get Jennie listed and two years before she got her transplant Jennie recounts the emotional and physical challenges, including contracting antibiotic-resistant infections and the decision to postpone the transplant due to her condition. Andi asks about the support journey for both mother and daughter Siri, Jennie's daughter answers that she was happy once everything was settled because she recalls the long period where her mother's life felt limited and the journey they had to go through in organ donation. Andi asks Siri, who is an artist, creator, activist, & cultivator, how the journey influences her music and the work that she does from a creative standpoint. Siri answers that it influenced everything and that she grabs inspiration from her mother and grandmother in every way. Siri shares that when they first got the diagnosis, she documented and made music about it. Andi asks Siri to share her favorite memory with her grandmother Andi asks what they would like to share with others, particularly in the black community, after just living through this experience. Siri shares her personal journey of overcoming misinformation and distrust, emphasizing the need for education and awareness. Andi questions what they would like to say to their donor family. Jennie expresses her deep gratitude to the donor family for their selflessness and the opportunity to continue living. Jennie and Siri discuss the activities and experiences they can now enjoy, such as walking and attending events. 3 Key Points: Jennie shared that she had sarcoidosis, and as a result, her lungs were severely damaged, which caused pulmonary hypertension. So before the donation, she had a backpack that had oxygen and a fanny pack that had a heart pump. It took a year to get Jennie listed and two years before she got her transplant because there were certain conditions to be met for her to get the transplant. Siri, Jennie's daughter recalls the long period where her mother's life felt limited and the journey they had to go through in organ donation. Siri is also an artist, creator, activist, & cultivator, and she found inspiration in her mother's journey. Siri shares her personal journey of overcoming misinformation and distrust, emphasizing the need for education and awareness. The conversation touches on the historical context of distrust in the medical system within the Black community and the importance of updating that narrative. Tweetable Quotes: “...with that waiting process, the stars have to be perfectly aligned, because you have to be, to be at the top of the list, you got to be the sickest of the sick, right? But you can't be too sick.” - Andi Johnson “My faith helped to sustain me, and I feel like God showed me a moment on the other side of this. And I just kind of held on to that.” - Jennie Wright “I think a lot of our work with people experiencing homelessness just came from the understanding early that life could take you anywhere, no matter what type of person you are, no matter where you come from, you can place where you just need people.” - Siri Imani “I was always planning on making sure, like, people knew who my mama was, people knew who my grandma was, and really remember because they made it clear who they were in their lifetimes.” - Siri Imani Resources: https://getoffthelist.org/ https://lifepassiton.org/ https://lifepassiton.org/board-of-directors-leadership/ https://www.facebook.com/LifeCenterOH https://www.youtube.com/user/LifeCenterOH https://aopo.org/

LifeCenter ahora es Network For Hope! (LifeCenter now is Network For Hope!) This episode of TTCL will feature an interview with Julie Luebbers on La Mega. This monthly interview will inform the Spanish Community about Network For Hope and the incredible miracles that happen with Organ, Eye, and Tissue Donation. Resources: https://getoffthelist.org/ https://www.networkforhope.org/ https://www.networkforhope.org/about-us/ https://www.facebook.com/NetworkForHopeOPO https://aopo.org/

In this heartfelt episode of This Thing Called Life Podcast, host Andi Johnson sits down with Mario Jarrett and his mother, Kesia, to discuss Mario's incredible journey following a cardiac arrest at just 16 years old. They share the challenges and miracles that shaped his need for a heart transplant, highlighting the unwavering love and support that surrounded him throughout this life-altering experience. Mario's story is a testament to resilience, faith, and the determination to embrace life fully. Join us as they delve into the power of hope and the importance of striving for personal growth every day. Don't miss this inspiring conversation!   This episode is dedicated to Mario's Heart Donor Amanda and her family! Episode Highlights: Mario Jarrett shares what led to his need for a Heart Transplant.  Mario was a high school Athlete participating in Baseball, Football, and Track & Field. Mario's cardiology team thought he suffered mini heart attacks over a period of time without knowing it.  Mario indicated he felt like he was just dehydrated. In May of 2021, while preparing for the state track and field competition, he went into cardiac arrest. Doctors told Mario and his family that he needed to have a heart transplant. Mario received a heart transplant at Children's Hospital in Cincinnati on July 26, 2021. Mario talks about how his Faith helped him get through his Health Crisis. Kesia Jarrett, Mario's mom, shares her gratitude for the donor's family, health providers, pastoral family, and all the family and friends who were there for her family. Kesia reveals that Mario's Doctors thought his health issues were stemming from Asthma but never expected it was his heart. Kesia remembered her spiritual nudge to seek a specialist for Mario. Kesia shares her family's motto to Live life and remember to help others in any way you can. Andi encourages Mario and Kesia to continue to share their story because it will help many understand the need for Organ Transplants.    3 Key Points: Even young athletes can experience health conditions, that require the need for an Organ Transplant. Remember self-care if you are a caregiver for someone going through a health issue. Share your gifts and create access and awareness of necessary resources for those in need, because, in the blink of an eye, it could be you.  And always remember we are meant to be in community with one another.    Tweetable Quotes: “Step out of your comfort zone every day.” - Mario Jarrett “I am grateful for every opportunity that we get to spread more light and awareness for individuals to consider being a donor for children like Mario.” - Kesia Jarrett “I am not bitter.  I know it happened for us…not to us.” - Kesia Jarrett “Stay in the space of understanding that even though you are going through this journey it is not the end… until it is.” - Kesia Jarrett Resources: https://getoffthelist.org/ https://www.networkforhope.org/ https://www.networkforhope.org/about-us/ https://www.facebook.com/NetworkForHopeOPO https://www.youtube.com/user/LifeCenterOH https://aopo.org/  

Welcome to today's episode of This Thing Called Life, where we explore the evolving landscape of organ, tissue, and eye donation. Join us as we chat with Dorrie Dils, the CEO of Gift of Life Michigan and the new President of the AOPO. In this episode, Dorrie and Andi Johnson delve into Dorrie's journey as a female CEO in the transplant field, discussing the challenges and triumphs she's faced along the way. They'll also highlight the significant increase in donations following expanded donor criteria, reflect on Dorrie's impactful speech, and uncover the steps that led her to this pivotal role. Don't miss this insightful conversation! Episode Highlights: Dorrie Dils, president and CEO of Gift Of Life Michigan and the new president of the Association of Organ Procurement Organizations, shares her experience in her inaugural year as president.  Dorrie shares that she has been in this field for 33 years, and there's been tremendous pressure from Congress, the White House, and outside entities to drive donation forward. There have been concerns due to change in metrics which may cause a rise in decertified OPO's and what that will do for patients who are waiting and for donors and donor families who wish to donate.  There has been a lot of change but Dorrie shares that she feels better today than ever before. Dorrie shares that the other big thing, which can't be denied, is just the massive increase in donations after circulatory death or ECD. Andi asked Dorrie what other positions she has worked in the OPO, Andi wanted to take a minute to have Dorrie share, as a woman in this field, what she did to reach her position of leadership today. Dorrie shares that she was in Critical Care Nursing, then a Donation Coordinator, and at times needed to be in hospital development, PR and Public Education.  Leadership opportunities led her to becoming procurement director then Chief Clinical Officer, before becoming the president, and CEO. Dorrie talks about her speech and what motivated her to talk about correlating the Barbie Movie (2023) and the need to be perfect in the transplant world.   3 Key Points: President and CEO of the Gift Of Life Michigan and the new president of the Association of Organ Procurement Organizations, Dorrie Dils shares her experience in her inaugural year of presidency, and the challenges due to changes. Dorrie shares that the other big thing, which can't be denied, is the massive increase in donation after circulatory death or ECD. Dorrie shares her years of experience, the steps that she had to take before stepping into her leadership role as a woman CEO, and the role of her deep passion for her working field.    Tweetable Quotes: “I've been in this field for 33 years, and it truly is the biggest change I've ever seen in our work, and there's been tremendous pressure from Congress and the White House and outside entities to drive donation forward, which has been a good thing.” - Dorrie Dils “We have in the world, have the best system for organ transplantation. And I think sometimes that gets forgotten.” - Andi Johnson “But I think the biggest ‘aha' moment is just how I've always been a hard worker. I've always felt in control of my success.” - Dorrie Dils “This field has evolved so much, and one of the things that I really hope will be my legacy is the evolution of how women are seen and treated in this field.” - Dorrie Dils Resources: https://getoffthelist.org/ https://lifepassiton.org/ https://lifepassiton.org/board-of-directors-leadership/ https://www.facebook.com/LifeCenterOH https://www.youtube.com/user/LifeCenterOH https://aopo.org/

"Uniting for Hope: The Merger Transforming Organ, Eye and Tissue Donation” We're thrilled to be back after our summer break, kicking off with exciting news about a transformative merger aimed at enhancing access to life-saving transplants. In this episode, hosts Andi Johnson, Julie Bergin, and Barry Massa delve into the merger between Kentucky Organ Donor Affiliates (KODA) and LifeCenter Organ Donor Network. Both organizations have a rich history of excellence in organ donation advocacy, and together they will rebrand as “Network for Hope.” This partnership will harness their combined strengths to bolster advocacy and community outreach efforts. Join us as Julie and Barry share their inspiring personal journeys and reveal how their leadership has shaped this merger, paving the way for a brighter future for organ recipients in need of support. Don't miss it! Episode Highlights: Andi Johnson introduces guests Julie Bergin and Barry Massa and the upcoming merger of KODA and LifeCenter. Barry explains the merger journey, starting with their initial meetings at airports heading to national conferences, and the proximity of each organization. The conversation about the future of organ procurement organizations eventually led to discussions about merging the two organizations. The boards of both organizations were supportive of the merger. Julie shares her experience as a new leader in the industry and the support she received from Barry. Julie highlights the synergies between the two organizations, even before the merger conversation began. Barry discusses the smaller size of LifeCenter compared to other organ procurement organizations and the potential for both organizations to flourish together. Andi asks about the challenges faced during the merger process. Barry discusses the unique nature of organ procurement organizations and the need to work through nuances. Julie talks about the challenge of change and the importance of reassuring staff that the changes are for the betterment of the mission. Andi asks about the meaning of "Network for Hope" and its significance. Julie explains the importance of the word "network" in "Network for Hope," highlighting the collaborative nature of the mission. Barry adds that the name "hope" is crucial, as it represents the hope brought to donor families and recipients. Andi asks what advice Barry and Julie have for other OPO's who are aiming for the same goal of merging. Barry says it is important to pick the right partner. The guests share their own experiences about some of the donors who have benefited from the gift of donation. Both Barry and Julie highlight the importance of community engagement and meeting people where they are. Julie brings up the special team that supports donor families. She also stresses the importance of one-to-one connections and providing resources for staff to better connect with families. Julie shares a personal story. Barry discusses the importance of providing emotional support. Resilience is a leader's responsibility and emotional support is crucial for staff to continue to work effectively. 3 Key Points: Andi Johnson and guests Julie Bergin and Barry Massa discussed the merger between Kentucky Organ Donor Affiliates and LifeCenter Organ Donor Network. Barry and Julie discuss the unique nature of organ procurement organizations and the need to work through nuances. They also talk about the challenge of change and the importance of reassuring staff that the changes are for the betterment of the mission. They (Barry & Julie) express optimism about the future of Network for Hope and the importance of everyone working together to achieve their goals.   Tweetable Quotes: “Barry was somebody who I was able to lean on as a new leader in this industry…” - Julie Bergin “So I think we realized that there was synergies there, even before the conversation turned to to merge our organization.” - Julie Bergin “We see an opportunity to really do things better…” - Julie Bergin “None of us do everything exactly the same…” - Barry Massa “Change in general is really hard for people, and our staff have had to deal with constant change, or the assumption that it's going to change, that has been a huge challenge, helping to inform them, reassure them, guide them.” - Julie Bergin “I think that's the thing that people probably fear most, is losing that culture that each had. And yeah, it's going to change a little bit, but it's going to be better in the long run, right?” - Barry Massa “Our whole job is to come to where they are, you know, see what their needs are, and to work with them to to allow donation to happen and still be respectful and mindful of the needs that they have as individuals.” - Julie Bergin Resources: https://getoffthelist.org/ https://lifepassiton.org/ https://lifepassiton.org/board-of-directors-leadership/ https://www.facebook.com/LifeCenterOH https://www.youtube.com/user/LifeCenterOH https://aopo.org/

This Thing Called Life Podcast will be on a summer hiatus returning this fall.  The essence of our mission remains. When we return, you can expect more powerful organ, eye, and tissue donation stories from the donors, recipients, families, and frontline healthcare workers. While we're on this break, if you or someone you know is seeking information about organ, eye, and tissue donation, I strongly encourage you to visit lifepassiton.org. It's a rich source of resources, stories, and opportunities for you to make a difference. Remember, every act of giving, no matter how small, has the potential to change a life. Even in our absence, let's continue to spread the word, encourage others to register as donors, and keep the spirit of "This Thing Called Life" alive and thriving.   Thank you for your unwavering support, understanding, and compassion for us and our guests throughout this journey. Until we meet again, take care of yourselves and each other.

Episode 93: Family Genetics That Lead To The Need For a Liver Transplant For Tony Burdette   On this episode of This Thing Called Life, Andi will speak with Mr. Tony Burdette, who will discuss his involvement with organ donation. Tony's life was saved in August 2019 via a liver transplant. His father passed down a genetic disease called alpha-1 antitrypsin deficiency to him. He was diagnosed in the early 1990s, with symptoms including exhaustion and low platelet counts. Tune in for his great story.   Episode Highlights:  Tony had never given much thought to organ donation, but sometimes it takes a crisis to bring it to the forefront of your mind. Tony's father underwent a liver transplant in 1997, but it was a painful experience since, after 14 hours, the surgeons came out and told them that he probably wouldn't survive. But, happily, doctors were able to get it to work sufficiently, and he received a second transplant two days later.  The hereditary condition does not impact everyone. They can live perfectly well without it. However, something triggered Tony's liver in early 2019, and his liver began to fail rapidly. Tony had all the excess fluid in his body, common for people with liver failure. So, he had to have the procedure called a thoracentesis, and over seven months, he had to have that procedure done 52 times. Tony couldn't keep having these procedures every other day. So at the University of Cincinnati Medical Center for evaluation at the Transplant clinic, he was put on the list rather quickly around the beginning of May and received his liver on August 3rd, 2019. It was a quick illness for Tony and a painful one, but thankfully his transplant and the surgery were very successful. He was discharged from the hospital just five days later without any complications. Tony has a brother. He obviously has the deficiency, but he hasn't had any symptoms so far. He is under the care of a GI, and they are keeping close tabs on him. Both of Tony's children have a deficiency as well, and they are under the care of the liver transplant team at children just out of precaution. The doctors check them every year and have liver scans done to keep a check on them and make sure everything is ok. About three weeks after Tony's transplant, he received two letters in the mail from elementary-age girls who wrote him a letter and said that they just wanted to let him know that he had received their mother's liver. Tony has studied music at the University of Cincinnati College-Conservatory, one of the greatest in the world, and it is such an honor to be accepted there. Tony is the artistic director of an organization called Aviva Voices Choral Organization. It's an organization that he founded, and it provides high-quality community choirs for children, youth, and adults. The program's cornerstone is the brand new work for a course and orchestra called the breath of life, and it was written actually before the pandemic. Often, being open with what you are going through can impact other people. When Tony was going through all this, we posted periodically about this on social media as encouragement for people. Tony encourages people to not be afraid no matter what you are going through in life. Be open, share, and find people that you can talk to and know that your story can impact people.   3 Key Points: Alpha-1 antitrypsin is an enzyme and it is created in the liver. The deficiency is that the enzyme gets trapped in the liver and creates a deficiency in the lungs. But when that enzyme gets trapped in the liver, it can cause liver damage. Tony has spent his whole career serving as a professional musician, singing professionally with opera and orchestras around the country, and doing a lot of conducting with choirs and teaching singing. Tony's concert's date is Saturday, April 30th, the last day of the month and the last day of donating life month. The concert is taking place at Christ Church Cathedral, which is a huge, beautiful venue.   Tweetable Quotes: “The dichotomy of organ donation is that, a life has to be lost in order to give life, but it's also a beautiful thing of sacrifice.” - Tony “You never know how donation and transplantation will work, but Tony thinks it's probably healing in many ways for both the donor family and the recipient.” – Andi “One of our core values is to be able to use the power of music to shed light on important things, and when we started this organization, we said that we wanted to have at least one concert once a year.” – Tony “Creating a free concert is based on the theme of life, the celebration of life, and use it woven together with stories. And the interesting thing about it is to bring awareness and make people aware of the power of organ donation.” – Tony “We are a core organization, and we specialize in classical music. You don't have to be affected by classical music or anything because there will be various music.” - Tony   Resources Mentioned: LifeCenter | Website | Facebook | Instagram | YouTube|  Twitter Andi Johnson  website |LinkedIn  Organ Donation Website https://www.vivavoices.net/about/ https://www.facebook.com/tony.burdette.5

This episode of TTCL will feature an interview with Julie Luebbers on La Mega.  The monthly interview will provide the Spanish Community with information about "Network For Hope" (New Name, formally Life Center, but the same passion for saving lives) and the incredible miracles that happen with Organ, Eye, and Tissue Donation.

A Calling To Find A Kidney Donor For All In Need   Darcy Gibson and Andy Johnson discuss the challenges faced by kidney transplant recipients and their families. In this episode they shared their experiences highlighting the importance of storytelling and education when raising awareness about kidney disease, emphasizing the impact of personal stories on building empathy and creating a sense of community.  Episode Highlights: Andi Johnson introduces Darci Gibson and the non-profit organization “Off The List”. “Off the List” aims to support individuals on the kidney transplant list and their families through their journey of waiting for a kidney and provide them with tools and resources to help them share their stories to find donors Darci shares what motivated her to start this non-profit and the passion behind the project. Darci tells us that her father needed a Kidney transplant, so she leveraged her background in Marketing to share her family story and get the word out about his need. Andi shares the importance of taking action and control over one's health, particularly for those with kidney disease or type 2 diabetes. Darci highlights the need for creating awareness and conversations around these conditions, as people often accept them as their fate without realizing they can take action to prevent or manage them. Darci shares an "aha" moment about the number of young people calling for kidney transplants, highlighting the need for early education and resource sharing. Darci offers encouragement to frustrated dialysis patients, emphasizing hope and support from others, including the possibility of finding a living donor. Andi asks how many families are “Off The List” helping now, and Darcy shares that they are currently working with 80 families. For those who want to contribute, the easiest way would be to go to their website https://getoffthelist.org/  There are programs through the National Kidney Registry where you can donate a kidney. It's called their advanced Donation Program, and you can designate up to five people in your family should they ever need an organ donation.   3 Key Points: Darci Gibson tells us about their non-profit organization called ‘Off The List' and shares how she was pushed into that journey by her own experiences. She also highlights the importance of early education for the next generation to help prevent kidney disease and to have the strength to believe that they could still take steps to manage it. Darci offers words of encouragement to a frustrated dialysis patient, emphasizing hope and support from others, including the possibility of finding a living donor. Tweetable Quotes: “... You have to share personal information. And that's hard to do, as humans, it's hard to ask people for help. And so I felt like there was a gap there that we could help fill and partner with the transplant centers and dialysis and nephrology to be able to just really dig in and personally with families through that and give them the tools.” - Darci Gibson “We just want them to know that we're here.” - Darci Gibson “And it's interesting how when I look back now, all of those things, was preparing me to do this. I mean, there was a reason and a purpose and that's why God was preparing me for this work.” - Darci Gibson Resources: https://getoffthelist.org/ https://lifepassiton.org/ https://lifepassiton.org/board-of-directors-leadership/ https://www.facebook.com/LifeCenterOH https://www.youtube.com/user/LifeCenterOH https://aopo.org/

In this episode of This Thing Called Life, Andi talks with Marty and Bonnie Garneret. Bonnie is not only Marty's wife but also his kidney champion.  Marty and his wife have been married for 42 years this month, and he says that he married an angel without wings.  They share their special journey and you are not going to want to miss it!

Community Heroes is a special extension of This Thing Called Life's podcast. In this series, we talk to community leaders, share important information about organ and tissue donation, and honor those who have been instrumental in saving lives through the gift of donation.  In this episode, we talk with Lincoln Ware from WDBZ the Buzz of Cincinnati talk station.     Resources: https://lifepassiton.org/ https://www.facebook.com/LifeCenterOH Life Center Phone # 513-558-5555