Podcasts about Craniosynostosis

Craniosynostosis is a condition where the bones of an infant's skull fuse together too early. In most cases, surgery in the first year of life will effectively correct it and the child can go on to expect a typical life. For a minority, craniosynostosis is part of a syndrome, which is a lifelong condition. This practical guide explains how craniosynostosis develops and the evidence-based, best-practice treatments. It also includes the lived experience of families. The writing of Craniosynostosis was led by Dr. Ruth Barta, MD, Craniofacial and Pediatric Plastic Surgeon at Gillette Children's, a world-renowned center of excellence for the treatment of brain, bone, and movement conditions.   The book is available here: https://www.mackeith.co.uk/book/craniosynostosis/   Follow DMCN on Podbean for more: https://dmcn.podbean.com/ ___ Watch DMCN Podcasts on YouTube: https://bit.ly/2ONCYiC __ DMCN Journal: Developmental Medicine & Child Neurology (DMCN) has defined the field of paediatric neurology and childhood-onset neurodisability for over 60 years. DMCN disseminates the latest clinical research results globally to enhance the care and improve the lives of disabled children and their families. DMCN Journal - https://onlinelibrary.wiley.com/journal/14698749 ___ Find us on Twitter! @mackeithpress - https://twitter.com/mackeithpress

In this episode of the CPCJ podcast series, Multimedia Editor Pat Chibbaro interviews Melanie Bakovic and Albert K. Oh, authors of the article entitled, "Socioeconomic Influence on Surgical Management and Outcomes in Patients with Craniosynostosis - A Systematic Review" (coauthored by Lilliana Starsiak, Spencer Bennett, Ryan McCaffrey, Esperanza Mantilla-Rivas, Monica Manrique and Gary F. Rogers).

In the twenty-third episode of The Motherwhelm, I am joined by Nicole, a mum-of-three from Victoria, who shares beautifully and openly about her experience of postpartum depression and anxiety as a young mother, the hard-earned confidence that comes with experience, and the resilience and strength it takes to parent in your own way, despite the immense societal pressure that mothers face. Perinatal Mental Health Resources: @gidgetfoundation https://www.gidgetfoundation.com.au @pandanational https://panda.org.au @lifelineaustralia Lifeline Australia 13 11 14 https://www.lifeline.org.au

In this episode of the PRS Global Open Keynotes podcast, Dr. Thomas Imahiyerobo discusses the value of virtual surgical planning in many types of surgery for craniosynostosis This episode discusses the following PRS Global Open article: The Role of Virtual Surgical Planning in Surgery for Complex Craniosynostosis by Thomas A. Imahiyerobo, Alyssa B. Valenti, Sergio Guadix, Myles LaValley, Paul A. Asadourian, Michelle Buontempo, Mark Souweidane and Caitlin Hoffman. Read the article for free on PRSGlobalOpen.com: https://bit.ly/TheRoleofVRPlanning Dr. Thomas Imahiyerobo is the Director of Cleft and Craniofacial Surgery as well as being Section Chief of Pediatric Plastic Surgery at Columbia University in New York. Your host, Dr. Damian Marucci, is a board-certified plastic surgeon and Associate Professor of Surgery at the University of Sydney in Australia. #PRSGlobalOpen #KeynotesPodcast #PlasticSurgery

 In this episode of the CPCJ podcast series, Multimedia Editor Pat Chibbaro interviews Julieta Moreno-Villagómez, author of the article entitled, "Health-Related Quality of Life in Mexican Children and Adolescents with Non-Syndromic Craniosynostosis" (coauthored by Miguel Castillo-Mimila, Guillermina Yáñez-Téllez, Belén Prieto-Corona and Antonio García-Méndez).

Happy holidays and welcome to our Summer Series! Whilst we're on break, we've handpicked some of our favourite episodes for your summer holiday listening.  This episode features Dr Golly's wife, Ilit Golshevsky. Together, they share the story of their youngest daughter, Pia, who was born with a birth defect called Craniosynostosis. LINKShttps://www1.racgp.org.au/ajgp/2022/january-february/paediatric-head-shape-and-craniosynostosisSee omnystudio.com/listener for privacy information.

As a plastic and reconstructive surgeon, Dr. Daniel Pyo's practice is largely devoted to craniofacial surgery for children with craniosynostosis, a condition which occurs when the skull bones fuse prematurely. Since he was a first-year plastic surgery resident, Dr. Pyo has traveled internationally several times a year with Operation Smile to help children with exaggerated deformities who do not have access to care. From correcting cleft lips and palates to addressing massive keloids, bringing hope and happiness into the lives of children and their families is something Dr. Pyo is committed to continuing beyond retirement. Dr. Pyo recently joined Summit Health, a multi-specialty group in Morristown, NJ, to dedicate more of his time to patients. Both his aesthetic and reconstructive patients in the area appreciate having an experienced, trusted plastic surgeon in the area without having to drive to New York or Philadelphia. To learn more about Dr. Daniel PyoLearn more about how to support Operation Smile Learn more about Operation Smile's student programsABOUT MEET THE DOCTOR The purpose of the Meet the Doctor podcast is simple. We want you to get to know your doctor before meeting them in person because you're making a life changing decision and time is scarce. The more you can learn about who your doctor is before you meet them, the better that first meeting will be.When you head into an important appointment more informed and better educated, you are able to have a richer, more specific conversation about the procedures and treatments you're interested in. There's no substitute for an in-person appointment, but we hope this comes close.Meet The Doctor is a production of The Axis. Made with love in Austin, Texas.Are you a doctor or do you know a doctor who'd like to be on the Meet the Doctor podcast? Book a free 30 minute recording session at meetthedoctorpodcast.com.

It is not uncommon for newborn babies to have slight imperfections in their heads. Most of the time, these imperfections will fix themselves over time, or once they begin to develop. However, sometimes a more serious diagnosis will require medical interventions. Craniosynostosis is a condition where a baby's skull begins to fuse together too early. This occurs at birth or shortly after and if not treated, can affect brain development.  Guests: Dr. Brooke French and Dr. Allyson Alexander. Dr Allyson is a Pediatric Neurosurgeon here at Children's Hospital Colorado and is also an Assistant Professor at University of Colorado School of Medicine. Dr. Brooke French is the Co – Director of Cleft and Craniofacial Surgery Programs and is also the Director of Cosmetic Surgery here at Children's Hospital Colorado. For more information on Children's Hospital Colorado, visit: childrenscolorado.org  

Today's episode is one close to Dr Golly's heart. His third child Olympia was born with a condition called Craniosynostosis. This meant that the bones in her skull weren't developing as they should, and that Pia would need to have serious, intensive surgery.  In this unique and introspective episode, Dr. Golly invites his wife Ilit Golshevsky onto the show. Together they open up about their individual struggles and for the first time, candidly reflect on the impact this experience had on their relationship and how it has shaped their family LINKS https://www1.racgp.org.au/ajgp/2022/january-february/paediatric-head-shape-and-craniosynostosisSee omnystudio.com/listener for privacy information.

Thank you to everyone who contributed to the development of the ACCORD resource, including our adult representatives, Headlines Craniofacial Support, Fine Rolling Media, and the specialist NHS craniofacial units. Special thanks to Anna Kearney, Katie Piggott, Andrea White, Dawn Wilkin, Emma McCann and Hannah Saunders. The ACCORD project was funded by the VTCT Foundation. To access ACCORD, visit: https://www.headlines.org.uk/for-adults. To access the short online evaluation survey, visit: tinyurl.com/ACCORD-Evaluation

In this emotionally moving episode, I had the opportunity to discuss with Joanna and her daughter Astrid's diagnosis of craniosynostosis, a condition that affects 1 in 2200 births. In this episode Joanna opened up to me about:▶︎ How Joanna's difficulty with breastfeeding her daughter and the observation of her head shape by the medical team led to Astrid's diagnosis of cranial synostosis.▶︎ How Joanna managed the emotional journey of dealing with her daughter's diagnosis, and the immense support she received from her husband, family, and friends.▶︎ The importance of trusting parental instincts and seeking medical attention if anything unusual is noticed in a child's development.▶︎ How Joanna felt supported by the pediatrician who provided referrals for specialists.▶︎ How Joanna's background as a social worker helped her advocate for her daughter and obtain the necessary care.▶︎ How Joanna experienced postpartum depression due to her expectations of the postpartum experience and emotional shutdown due to her daughter's birth defect and how she found support from the Santa Rosa Mothers Club.▶︎ The significance of letting go of perfectionism and control and supporting your child through whatever ups and downs.▶︎ How joining support groups such as Cranial Kids Cranial Support on Facebook can provide advice and connect you with others going through similar experiences.▶︎ How parents are encouraged to take advantage of early intervention services if their child is not meeting certain milestones. (In California, these services are free for children under three years old and can include speech and physical therapy.)Cranio Kids- Craniosynostosis Support GroupEarly Start CAIf you're interested in sharing your parenting story with the world, drop me a line on Instagram If you enjoyed this podcast and would like to show your support, please consider giving a 5-star rating. Your ratings help us grow!To stay updated and never miss an episode of The Real Parenting Stories, follow the podcast Instagram account: @realparentingstories

This episode's topic is "How to Find the Right Life Coach". Our guest this week to share 3 thoughts on this topic is Melissa Wiggins, who is the Founder of Cannonball Kids cancer Foundation and now a Master Certified Life Coach, helping women (and couples) to encourage and empower them to become the best version of themselves.  TOPIC:  How to Find the Right Life Coach GUEST: Melissa Wiggins THOUGHT #1Decide on a Budget - How Much You Are Comfortable to Invest in Yourself? THOUGHT #2Treat It Like You Are Dating - Get as Much Information as Possible Before Making a Decision THOUGHT #3Start at the Result - Review Testimonials from Previous Clients CONNECT:Website: MelissaWiggins.LifePodcast: Coaching and a Cup of Tea with MummabearBook: Thankful for the FightInstagram: @coachmummabear_ MELISSA WIGGINS' BIO:Melissa Wiggins, a Scotland native, currently residing in Orlando, FL, is a proud mum of 5, and an advocate for change in pediatric cancer. She holds a law degree from the prestigious University of Glasgow (2004-2006) and worked as a commercial litigation solicitor prior to moving to Orlando in 2010, where she gained court experience and a background in advocacy. When her first born son, Cannon James Roland Wiggins, was diagnosed with stage 4 cancer, and she was about to give birth to twins, her full-time calling for 3.5 years became saving her son's life. Melissa and her husband Michael founded Cannonball Kids' cancer, a nonprofit pediatric cancer research foundation in 2015. Cannon, his cancer journey, survivorship, and her family's experience, inspired her to write her first book “Thankful For the Fight'' in which she shares her family's heartbreaking and inspiring cancer battle. In addition to advocate, lawyer, boss, and wife, Melissa proudly wears the hats of stepmum, bio mum, adoptive mum, and most recently, grandmother - all by 36! Melissa is now a lawyer turned Master Certified Coach and has since worked with countless women, encouraging, and empowering them to become the best version of themselves – or as she likes to say, helping them “get ripped on the inside – that their insides match their outside.”It is said that life's hardest moments make us stronger. That is true for Melissa. As a result of advocating, fundraising, and changing the world of pediatric cancer Melissa has had the privilege of speaking on stages across the globe from keynoting at Glasgow Children's Hospital, to the SF Giants stadium, and the private home of Dick Vitale, ESPN megastar. While those stages are powerful platforms indeed there has been nothing more transformative for Melissa than the stories of love and hope found over a shared over cup of tea with another mother or family walking through their hardest times. Pediatric cancer is not fun.  It is hard. It is unforgiving. It does not discriminate. It forces you to reckon with what you think you know about yourself. It challenges you in ways nothing else can. The battle isn't always in treatments or diagnosis it is your mental emotional and spiritual strength. And even still, it is all too often not enough to win. While she did not know it, every hard thing she walked through, every devastated mother's hand that she held as another precious baby was taken too early, every plane she boarded to travel across the country to speak for the voiceless… Was giving birth to something even more powerful…Mummabear is her moniker and it is also a metaphor. Life is hard but we can do hard things. Strength does not come from life being easy. Radical changes in the way we live our lives, or practice medicine do not come from our silence. It comes from finding our ROAR. Melissa knows that to live your truth, you must first find your voice. Her ROAR, saved her son, changed her marriage, and transformed her life. Today, she is passionate about sharing this message and this work with women around the world. Awards:Melissa and her work have been honored and recognized in many ways over the years:Top 30 Life Coaches To Look Out For In 2021 (2021)Micro influencers to look out for in 2021 (2021)Superwoman of the year with Orlando Family Magazine (2019)Woman of the Year with Orlando Magazine (2019)40 under 40 with the Orlando Business Journal (2018)Winner of the Victory Cup Initiative (2018)Woman of the Year with Orange Appeal (2018)Message of the year with The Collective's Change Everything awards (2017)Women to watch (2014).Links to award articles and video:Award: Top 30 Life Coaches To Look Out For In 2021https://thenycjournal.com/top-30-life-coaches-to-look-out-for-in-2021/Award: Micro influencers to look out for in 2021https://www.influencive.com/micro-influencers-to-look-out-for-in-2021/https://www.influencive.com/micro-influencers-to-look-out-for-in-2021/Award: 2019 Woman of the Year w/ Orlando MagazineVideo of the event provided by CKc YouTube page https://www.youtube.com/watch?v=-jWiLor6OkAAward: 2018 40 under 40 w/ Orlando Business Journalhttps://www.bizjournals.com/orlando/news/2018/12/12/how-her-toddlers-experience-led-this-british-expat.htmlAward: 2018 Woman of the Year w/ Orange appealOrange Appeal January/February 2018 magazine, page 108 Melissa's interviewhttps://issuu.com/orangeappealmagazine/docs/oa_0118-issuu Cannonball Kids' cancerWhen her son's battle with cancer began, Melissa realized the true horrors of pediatric cancer. From a lack of funding for new treatment options, to the enduring despair families often face in silence. The government spends less than 4% of the annual cancer research budget on pediatric cancers. This means there is little to no treatment options for the children as there is little to no money invested for research purposes. Having always been taught to “Go big or Go home” and experiencing this reality firsthand, she used her drive to become a founding member of Cannonball Kids' cancer. CKc was founded on June 16, 2014. The mission behind this one of a kind foundation is to fund innovative, accessible research, to provide better treatments and quality of life, and most importantly, to educate for change. CKc, focuses on funding clinical research trials with board appointed scientists. These trials give children a chance to survive and thrive. CKc has created over 590 treatment options for pediatric cancer patients, and has taken over 25 U.S. States, plus Washington DC, Canada, Scotland and Switzerland. And in 6 years they have created more treatment options for patients than has been available for the last 40 years. In addition to the brilliant work of the scientists and their committed teams, the CKc community outreach and education team has launched multiple impactful marketing campaigns such as #NoMoreOptions. The #NoMoreOptions campaign brought awareness to the critical moment when a doctor must tell parents “we have no more options for helping your sick child”. This campaign received nationwide recognition being featured in Times Square and all over the U.S. on public buses. The more recent campaign, “This is Treatment'' was revealed at their annual Gold Gala, featuring many of the kids on CKc trials who have endured secondary hardships due to traditional chemotherapy treatments. Through this campaign CKc's goal was to educate communities on what is rarely ever discussed: First, that the typical treatments for pediatric cancer are simply watered-down adult chemotherapy. And, finally, the dramatic and life altering consequences of those treatments – such as hearing loss, loss of limbs, developmental delays and many more. We need to fund research in order to create treatments that are appropriate for children's bodies, and to ensure they have the opportunity to live complete and whole lives. One of the most awaited nights of the year for any CKc supporter (and team member) is the “Gold Gala” night, or as Cannon likes to call it “his party”. The purpose for this gala is to raise money that will later be used for funding new innovative trials, to educate and to engage a new crowd of people who are eager to help and get started on the journey with CKc. Money is raised, educational and inspirational speakers such as CKc founders, researchers, patients and their families share their stories, sensational auctions, a live DJ, delicious food, all to change the world of pediatric cancer. As the support for CKc has grown exponentially since 2014, the team realized it was time to empower supporters who were eager to drive change in their own communities. And so, “Ambassador Training” was born. The first cohort of 60 people from all over the U.S. who were interested in becoming more involved with the mission of educating for change gathered together and received advocate training. Learning how to stand up and use their voices in their hometowns, cities, states. This group of advocates now speak up about the disparity in funding, lobby for change, and share the harsh reality that comes with pediatric cancer. These Ambassadors share the stories of families who have suffered and made the most unfair sacrifices, and make sure that the children taken by pediatric cancer are not forgotten – but beacons for hope and change. Writing:Melissa realized early on that very few know, and even less understand, the world of pediatric cancer, which is the number one killer of children in the U.S. The experience is isolating, within families and communities because watching children suffer is hard. However, she knew in her bones if the world could see and not look away, they would be moved to change. So, Melissa took it upon herself to show everyone the gut wrenching, heart dropping truth by publishing her first book called “Thankful for the Fight” (2018). “Thankful for the Fight” was a central quote Melissa used through-out her family's cancer journey. In this book she details her son Cannon's battle - sharing the pictures of her two year old during treatment, and blood transfusions, and the after-effects of those treatments. And also, this book shows the healing power of gratitude – from within the family between her and her husband, and for the community that gathered around them and walked with them through the hardest time in their lives. Speaking:Melissa is a big advocate in the pediatric cancer world and as a result has had many opportunities to publicly share her knowledge. She has been invited to speak and be interviewed for TV, local news channels, podcasts, and has been praised and featured in many magazines. Adoption:Melissa had always dreamed of adopting a little girl into the Wiggins clan. Already a mum to 4 awesome kids and a cute bull mastiff, there was just a little something needed to complete her cup of gratitude. In comes the beautiful rainbow, which is what the family refers to her as, Charlie Mary Emma Wiggins. A little 2-year-old Colombian baby girl, with a personality bigger than life itself - who shares the same birthdate as her mumma (a God-incidence, as Melissa likes to say). After the year-long process of paperwork, home studies, meetings, 30 days in Colombia without her 3 boys, the little rainbow was finally able to come home to her family.The adoption journey was hard, but anything is possible with a strong team behind her. Charlie met her mummy and daddy in Colombia for the first time, and it was a bond like no other. After those long 30 days, Melissa and Charlie headed home for Orlando where Cannon, Arran and Gray patiently awaited their sister's arrival. Her room had been ready with a hand painted rainbow on it, head bows hanging on the walls and princess decoration galore. When she met her brothers, it was as if they had been siblings their whole lives, it took no effort at all for these 4 siblings to get along. Charlie loves her big sister Olivia, who is away at college, but has made many trips to come home to see her little sister. Not only is she receiving all the love she deserves, but she is also receiving the medical attention she needs. At just a couple days old Charlie was put into an orphanage where it was discovered that she had craniosynostosis. Craniosynostosis is a birth defect which causes the bones in a baby's skull to join too early, in most cases causing developmental delays if not treated right away. She came into the U.S. with a surgery already scheduled so that her growth would not be greatly impacted. In the 8 months since Charlie came home and she has gone through 2 major surgeries where her head was opened from ear to ear for the purpose of reshaping her skull giving her brain the space it needs to adequately grow.In such a short time Charlie is a new person. She smiles ear to ear upon waking up. She loves to swim with her family. She loves to go on adventures down to the lake. She can ride her scooter like no other and she loves to snack. The impact a loving home can have on a child is huge. She is a strong, brave girl as she loves to say, and has shown a lot of Melissa's followers that although adoption is hard, we can all do hard things for love. Social media:You can keep up with Melissa on social media: On IG at @mummabearwiggins_ and Facebook. There you can see her day to day raising 4 kids. Pictures of her new granddaughter. Charlie's journey since integrating with her family. Cannon's journey in life as a now happy 8-year-old. The awesome Dr. Gray who insists on being called Dr. as he aspires to be a brain surgeon someday. And Arran, who is filled with love and creativity. You can also catch up with some of her personal day to day adventures as a wife, boss, writer, speaker, and pediatric cancer advocate. BRAND RESOURCES:Evergreen Podcast Network - EvergereenPodcasts.comThoughts That Rock – ThoughtsThatRock.comCertified Rock Star - CertifiedRockStar.comBooky Call - https://www.bookycall.comBooky Call - Book Review App on Apple - Apps.Apple.comBooky Call - Book Review App on Google Play - Play.Google.Com Service That Rocks: TCreate Unforgettable Experiences  and Turn Customers into Fans (Jim Knight) - ServiceThatRocksBook.comLeadership That Rocks: Take Your Brand's Culture to Eleven and Amp Up Results (Jim Knight) - LeadershipThatRocksBook.comCulture That Rocks: How to Revolutionize Your Company's Culture (Jim Knight) – CultureThatRocks.comBlack Sheep: Unleash the Extraordinary, Awe-Inspiring, Undiscovered You (Brant Menswar) - FindYourBlackSheep.comRock ‘n Roll With It: Overcoming the Challenge of Change (Brant Menswar) – RocknRollWithIt.comCannonball Kids' cancer – CannonballKidscancer.orgBig Kettle Drum - BigKettleDrum.comSpectacle Photography (Show/Website Photos) – SpectaclePhoto.comJeffrey Todd “JT” Keel (Show Music) - JT Keel

It can be hard to formulate long-term treatment plans when your patients are young. Syndromic craniosynostosis is diagnosable at birth, meaning that the treatment plans need to start from the get-go. In the previous episode, we spoke to Dr. Michael Markiewicz (MD DDS FACS) about craniosynostosis: how to diagnose it, what causes it, the different forms of the deformity, and why doctors shouldn't delay diagnosis. In this episode, we welcome back Dr. Mankiewicz and talk further about the syndromic aspect of craniosynostosis, looking specifically at syndromic versus non-syndromic. Dr. Markiewicz compares Apert syndrome and Crouzon syndrome, their characteristics and features, and the differing opinions on treatment plans. Dr. Markiewicz discusses the purpose of distraction osteogenesis when treating craniosynostosis, the amazing combination of virtual surgery planning and resorbable plates/screws, and why he is an advocate for cranial implants. Key Points From This Episode:The syndromes that can accompany craniosynostosis.How geneticists help diagnose syndromic craniosynostosis.Who makes up the Craniofacial team.The most common syndromes Dr. Markiewicz treats.The main characteristics and features of Apert syndrome and Crouzon syndrome.The differing opinions on treatment for Craniofacial dysostosis.The timeline for sequencing different stages of treatment.The role of the neurosurgeon, pediatric ophthalmologist, orthodontist, and OMFS.The role of virtual planning.The materials (typically titanium) used during craniosynostosis surgery.The purpose of distraction osteogenesis when treating craniosynostosis. New medical advancements Dr. Markiewicz is seeing.Why Dr. Markiewicz is an advocate for cranial implants.The consolidation phase versus the distraction period.The social management of big surgeries with a small child. Links Mentioned in Today's Episode:Dr. Michael Markiewicz — https://www.michaelmarkiewiczddsmd.com/Dr. Michael Markiewicz on LinkedIn — https://www.linkedin.com/in/michael-markiewicz-dds-md-mph-facs-04b02821/Dr. Michael Markiewicz on Twitter — https://twitter.com/mrmarkiewiczmdDr. Michael Markiewicz on Faceboook — https://www.facebook.com/drmichaelmarkiewiczmdddsDr. Michael Markiewicz on Instagram — https://www.instagram.com/drmichaelmarkiewiczmdddsDr. Michael Markiewicz Email — mrm25@buffalo.eduCraniosynostosis Surgery — https://www.chop.edu/treatments/surgical-treatment-craniosynostosisAO Foundation Surgery Reference — https://surgeryreference.aofoundation.org/Everyday Oral Surgery Website — https://www.everydayoralsurgery.com/ Everyday Oral Surgery on Instagram — https://www.instagram.com/everydayoralsurgery/ Everyday Oral Surgery on Facebook — https://www.facebook.com/EverydayOralSurgery/Dr. Grant Stucki Email — grantstucki@gmail.comDr. Grant Stucki Phone — 720-441-6059KLS Martin promo code EOSExo22 — https://www.klsmartin.com/ 

As a surgeon, you can never stop learning, and being able to diagnose and treat non-syndromic craniosynostosis is a skill you want to have as an oral surgeon! Today we are welcoming Dr. Michael Markiewicz back to the show to talk to us about this deformity. Tuning in, you'll hear all about how to diagnose craniosynostosis, what causes it, the different forms of the deformity, and why doctors should not delay diagnosis. We also discuss what Dr. Markiewicz presents to his patients as solutions, how virtual planning assists in surgery, when and how a helmet is used, and the specific incision Dr. Markiewicz likes to use in non-syndromic craniosynostosis surgery. Finally, our guest also delves into his background before encouraging surgeons to do fellowships, seek mentorship, and never stop learning! To hear all about this unique and potentially controversial surgery from our phenomenal guest, tune in now!Key Points From This Episode:Introducing today's guest, Dr. Michael Markiewicz.Dr. Markiewicz explains the process of diagnosing craniosynostosis. What causes non-syndromic craniosynostosis and why we don't have the exact reason. Dr. Markiewicz tells us what the most common forms of craniosynostosis are. Dr. Markiewicz explains the risks of these surgeries.Why surgeons look for papilledema and why it is an emergency. The importance of avoiding delaying diagnosis. Dr. Markiewicz shares the possible solutions he offers patients diagnosed with this condition. How virtual planning assists in surgery by making it more predictable and safer. The gaps Dr. Markiewicz leaves for growth in pediatric patients and when a helmet is needed. Dr. Markiewicz explains how the helmet works and how progress is measured. The most common ways these issues are diagnosed. The type of incision Dr. Markiewicz uses during these surgeries. A brief overview of Dr. Markiewicz's professional background. Why he thinks craniofacial surgery is so controversial. Why doing a fellowship is beneficial and the importance of mentorship. Links Mentioned in Today's Episode:Dr. Michael Markiewicz — https://www.michaelmarkiewiczddsmd.com/Dr. Michael Markiewicz on LinkedIn — https://www.linkedin.com/in/michael-markiewicz-dds-md-mph-facs-04b02821/Dr. Michael Markiewicz on Twitter — https://twitter.com/mrmarkiewiczmdDr. Michael Markiewicz on Faceboook — https://www.facebook.com/drmichaelmarkiewiczmdddsDr. Michael Markiewicz on Instagram — https://www.instagram.com/drmichaelmarkiewiczmddds/?hl=enDr. Michael Markiewicz Email Address — mrm25@buffalo.eduEveryday Oral Surgery Website — https://www.everydayoralsurgery.com/ Everyday Oral Surgery on Instagram — https://www.instagram.com/everydayoralsurgery/ Everyday Oral Surgery on Facebook — https://www.facebook.com/EverydayOralSurgery/Dr. Grant Stucki Email — grantstucki@gmail.comDr. Grant Stucki Phone — 720-441-6059KLS Martin promo code EOSExo22 — https://www.klsmartin.com/ 

In this podcast, we discuss the article 'Safety of antifibrinolytics in 6583 pediatric patients having craniosynostosis surgery: A decade of data reported from the multicenter Pediatric Craniofacial Collaborative Group'. We hope you enjoy. 

Sometimes the bones of a baby's skull join together too early in a condition called craniosynostosis. Dr. Paul Klimo, chief of Pediatric Neurosurgery at Le Bonheur, discusses the signs and treatments of this relatively common condition.

First author Elizabeth Hopkins discusses how she and her colleagues used the Peds-NSQIP database to ellucidate variations in outcome between conventional vs. minimally invasive craniosynostosis surgery with Sanjay Naran, Melissa Kanack, and Carolyn Rogers-Vizena. Read the article here.

It is not uncommon for newborn babies to have slight imperfections in their heads. Most of the time, these imperfections will fix themselves over time, or once they begin to develop. However, sometimes a more serious diagnosis will require medical interventions. Craniosynostosis is a condition where a baby's skull begins to fuse together too early. This occurs at birth or shortly after and if not treated, can affect brain development.  Today, I am excited to be speaking with my colleagues Dr. Brooke French and Dr. Allyson Alexander. Dr Allyson is a Pediatric Neurosurgeon here at Children's Hospital Colorado and is also an Assistant Professor at University of Colorado School of Medicine. Dr. Brooke French is the Co – Director of Cleft and Craniofacial Surgery Programs and is also the Director of Cosmetic Surgery here at Children's Hospital Colorado.

In this patient education podcast, A/Prof Damian Marucci outlines the diagnosis and management of craniosynostosis. Craniosynostosis is treated in different ways by different craniofacial units. This podcast aims to provide a broad overview of the nature of craniosynostosis, its diagnosis and management as well as the potential complications of treatment

Years before our daughter was diagnosed with autism, we had a totally different neurological adventure - join Ali & John as they talk about Baby's First Skull Surgery™!We also briefly talk about Autcraft, a Minecraft server specifically for autistic players.Ted Hour - Autcraft segment begins at 33:05https://overcast.fm/+HuQLAtd9wAutcraft -https://www.autcraft.com

This month, Bruna and Jade discuss the topic of craniosynostosis, with a focus on the experiences of parents of children with the condition. On the episode, Bruna and Jade are joined by several guests: Nicola Stock, Associate Professor at the Centre for Appearance Research; Karen Wilkinson-Bell, Director of Headlines Craniofacial support; and Lucy, Kris and Michelle, parents of children with craniosynostosis. To find out more about the Centre for Appearance Research, follow us: • On Twitter: twitter.com/CAR_UWE • On Instagram: www.instagram.com/car_uwe/ • On Facebook: www.facebook.com/AppearanceResearch To find out more about the work of Headlines Craniofacial Support, and to access the parent booklet that was referenced in this episode, visit: www.headlines.org.uk Please share, subscribe, rate and review. It really does mean a lot. Thank you! B & J x Music by Sian Evans & John Landau: toplinefilm.com Cover photo from Headlines Craniofacial Support (with special thanks to Monty, Lucy and Kris). Episode developed & produced by Bruna Costa.

In this episode of the PRS Global Open Keynotes Podcast, Santiago Ochandiano MD, David García-Mato PhD, and Marius Linguraru DPhil present a new approach for automatic planning of fronto-orbital advancement. This episode discusses the following PRS Global Open article: “Effectiveness of Automatic Planning of Fronto-orbital Advancement for the Surgical Correction of Metopic Craniosynostosis” by David García-Mato, Antonio R. Porras, Santiago Ochandiano, Gary F. Rogers, Roberto García-Leal, José I. Salmerón, Javier Pascau, and Marius George Linguraru. Read the article for free on PRSGlobalOpen.com: https://bit.ly/CranioPlanning Dr. Ochandiano is a craniofacial plastic surgeon at the Gregorio Marañón Hospital in Madrid, Spain. Dr. Garcia-Mato is a research and development engineer in Las Palmas, Spain. Dr. Linguraru is Principal Investigator at Children's National Hospial and Professor of Pediatrics and Radiology at the School of Medicine and Health Sciences at George Washington University in Washington, D.C. Your host, Dr. Damian Marucci, is a board-certified plastic surgeon and Associate Professor of Surgery at the University of Sydney in Australia. #PRSGlobalOpen #KeynotesPodcast #PlasticSurgery

In this episode of the PRS Global Open Keynotes Podcast, Santiago Ochandiano MD, David García-Mato PhD, and Marius Linguraru DPhil present a new approach for automatic planning of fronto-orbital advancement. This episode discusses the following PRS Global Open article: “Effectiveness of Automatic Planning of Fronto-orbital Advancement for the Surgical Correction of Metopic Craniosynostosis” by David García-Mato, Antonio R. Porras, Santiago Ochandiano, Gary F. Rogers, Roberto García-Leal, José I. Salmerón, Javier Pascau, and Marius George Linguraru. Read the article for free on PRSGlobalOpen.com: https://bit.ly/CranioPlanning Dr. Ochandiano is a craniofacial plastic surgeon at the Gregorio Marañón Hospital in Madrid, Spain. Dr. Garcia-Mato is a research and development engineer in Las Palmas, Spain. Dr. Linguraru is Principal Investigator at Children's National Hospial and Professor of Pediatrics and Radiology at the School of Medicine and Health Sciences at George Washington University in Washington, D.C. Your host, Dr. Damian Marucci, is a board-certified plastic surgeon and Associate Professor of Surgery at the University of Sydney in Australia. #PRSGlobalOpen #KeynotesPodcast #PlasticSurgery

For infants with a misshapen skull—or craniosynostosis—treatment is critical to ensure proper brain development. Pediatric surgeons Dr. Faizi Siddiqi and Dr. John Kestle explain the procedure options that are available, the pros and cons of those options, and which might be the best for your infant.

A condition that causes a newborn's skull to be misshapen, craniosynostosis occurs in about 1 in 2,000 births—and it should be treated. Plastic surgeon Dr. Faizi Siddiqi and neurosurgeon Dr. John R. Kestle discuss how to identify the condition, how it's treated, and why it's so important for your infant to have the procedure sooner rather than later.

This episode continues our resident led In-Service Review  series and covers Craniofacial!ISR27 covers everything you need to know for the in-service exam as we have reviewed the exam from the past 5 years to make this episode. Your Hosts for this episode are Dr. Sanam Zahedi @doctorzahedi and Dr. Morgan Martin @morganmartinmd . Production, design, and editing by our Co-Founder Greta Davis @greta_davis Visual supplement editing: Zain Aryanpour and Edgar Soto. Music was produced by Alec Fisher, MD @alechfishermd Check out our YouTube Channel for the visual supplement to this episode!https://linktr.ee/Theloupepodcast

This episode provides an overview of Dr. David's approach towards patients with craniosynostosis, under consideration for spring assisted cranioplasty. We also discuss surgical planning, technical details of spring assisted cranioplasty as well as postoperative management of patient undergoing this operation. 

This episode covers craniosynostosis.Written notes can be found at https://zerotofinals.com/paediatrics/neurology/craniosynostosis/ or in the neurology section in the Zero to Finals paediatrics book.The audio in the episode was expertly edited by Harry Watchman.

Meg, is mom to four children one of whom is living with syndromic craniosynostosis. Her daughter, Avery, who is now six-years-old is proof that children are resilient and capable of so much. She discusses the exhaustion that comes from being the caregiver for a child who requires around the clock care. Meg attributes family (20+ cousins!) constantly surrounding her with love to be one of the biggest parts of their coping. "The first year is so tough, so buckle up. But once it’s over, you’ll be an expert on your child’s care and condition. Everything gets easier with times." Meg says that following other families on social media who have similar conditions can be a great resource for connection and support. To learn more, you can follow @meg_apperson and go to her blog www.fourfinelives.com. Read her book Sky Full of Stars. Child Life On Call | Instagram | Facebook | Twitter    I worried that she might suffer some cognitive delays, but she is an incredibly bright kid! In my experience, when someone looks “different”, people automatically assume that they aren’t able to communicate or understand what’s happening around them. People act surprised when Avery speaks to them.   Yes! You can find me on my blog, www.fourfinelives.com and on Instagram: https://www.instagram.com/meg_apperson/

Lance Governale, MD discusses head shape anomalies in babies He compares the clinical features of the different varieties of craniosynostosis. He differentiates craniosynostosis from positional plagiocephaly and he helps us to become familiar with the different treatment options for craniosynostosis and the need for early referral.

A special edition with New Hampshire resident Heather Figureoa and her story of her young son Branson with a rare skull condition called craniosynostosis and in need of a second surgery requiring to go to a specialist in Texas. Heather talks about the rare condition and the story behind of how it all got started..and is also asking for support to raise $50,000 for the process at https://www.gofundme.com/f/help-for-bransons-surgery-and-travel?utm_source=customer&utm_campaign=p_cp+share-sheet&utm_medium=copy_link-tip !

In this episode of the PRS Global Open Keynotes Podcast, Jeffrey Ascherman MD discusses blood loss and possible transfusion requirements in craniosynostosis. The PRS Global Open article discussed is available to read for free on PRSGlobalOpen.com. “Calculated Blood Loss and Transfusion Requirements in Primary Open Repair of Craniosynostosis” by Marcos M. Lopez Jr, James Lee, Kerry Morrison, Caitlin Hoffman, Mark Souweidane, Jeffrey A. Ascherman. Read Here: http://bit.ly/CraniosynostosisBloodLoss Dr. Jeffrey Ascherman is a Thomas S. Zimmer Professor of Reconstructive Surgery at the Columbia School of Medicine. Your host, Dr. Damian Marucci, is a board-certified plastic surgeon and Associate Professor of Plastic surgery at the University of Sydney in Australia. #PRSGlobalOpen #KeynotesPodcast #PlasticSurgery

In this episode of the PRS Global Open Keynotes Podcast, Jeffrey Ascherman MD discusses blood loss and possible transfusion requirements in craniosynostosis. The PRS Global Open article discussed is available to read for free on PRSGlobalOpen.com. “Calculated Blood Loss and Transfusion Requirements in Primary Open Repair of Craniosynostosis” by Marcos M. Lopez Jr, James Lee, Kerry Morrison, Caitlin Hoffman, Mark Souweidane, Jeffrey A. Ascherman Read Here: http://bit.ly/CraniosynostosisBloodLoss Dr. Jeffrey Ascherman is a Thomas S. Zimmer Professor of Reconstructive Surgery at the Columbia School of Medicine. Your host, Dr. Damian Marucci, is a board-certified plastic surgeon and Associate Professor of Plastic surgery at the University of Sydney in Australia. #PRSGlobalOpen #KeynotesPodcast #PlasticSurgery

This episode covers the basics of the assessment and management of a patient with craniosynostosis

In this episode of the PRS Global Open Keynotes Podcast, Jesse Goldstein MD discusses the effects of craniosynostosis and the incidence of related congenital anomalies including Chiari malformations and sagittal craniosynostosis. The PRS Global Open article discussed is available to read for free on PRSGlobalOpen.com. “The Incidence of Chiari Malformations in Patients with Isolated Sagittal Synostosis” by Amani Ali Davis, Giulio Zuccoli, Mostafa M. Haredy, Lauren Runkel, Joseph Losee, Ian F. Pollack, Mandeep S. Tamber, Elizabeth Tyler-Kabara, Jesse A. Goldstein, Ken-K Nischal. Read Here: http://bit.ly/Chiari_Malformations Dr. Jesse Goldstein is a board-certified plastic surgeon, attending craniofacial surgeon and Associate Professor of Surgery of the Children's Hospital of Pittsburgh. Your host, Dr. Damian Marucci, is a board-certified plastic surgeon and Associate Professor of Plastic surgery at the University of Sydney in Australia. #PRSGlobalOpen #KeynotesPodcast #PlasticSurgery

In this episode of the PRS Global Open Keynotes Podcast, Jesse Goldstein MD discusses the effects of craniosynostosis and the incidence of related congenital anomalies including Chiari malformations and sagittal craniosynostosis. The PRS Global Open article discussed is available to read for free on PRSGlobalOpen.com. “The Incidence of Chiari Malformations in Patients with Isolated Sagittal Synostosis” by Amani Ali Davis, Giulio Zuccoli, Mostafa M. Haredy, Lauren Runkel, Joseph Losee, Ian F. Pollack, Mandeep S. Tamber, Elizabeth Tyler-Kabara, Jesse A. Goldstein, Ken-K Nischal. Read Here: http://bit.ly/Chiari_Malformations Dr. Jesse Goldstein is a board-certified plastic surgeon, attending craniofacial surgeon and Associate Professor of Surgery of the Children’s Hospital of Pittsburgh. Your host, Dr. Damian Marucci, is a board-certified plastic surgeon and Associate Professor of Plastic surgery at the University of Sydney in Australia.#PRSGlobalOpen #KeynotesPodcast #PlasticSurgery

We are late, like really late, but the episode is here, RYAN VARGAS joins the program to talk to us about his debut in Xfinity, some of his favorite racing moments, and we dive into some bold predictions for the 2020 season (including picks for a race that already happened after we uploaded). Ryan was such a special guest to have on the podcast, he gave us some great stories, including the awesome message behind his scar and bringing awareness to Craniosynostosis amongst the NASCAR community. Anthony and Kevin also make (incorrect) picks for races we saw already. Follow us on twitter @LTLNpodcast and subscribe for our Daytona 500 preview!

Select segments from PediaCast. For full-length episodes, visit PediaCast.org, Apple Podcasts, Google Play, Stitcher, Tune-In, iHeart Radio, Spotify or wherever else podcasts are found!

Drs Gregory Pearson and Ibrahim Khansa visit the studio as we explore syndromic craniosynostosis. This condition impacts growth of a baby’s skull. We discuss the cause, symptoms, diagnosis, management, complications and long-term outlook for kids affected by this disorder. We hope you can join us!

In episode four, Anthony and Bethanie share intimate details of Deuce's craniosynostosis journey from beginning to end - with lots of laughs and a few tears. Bethanie also shares her fears with Anthony quitting his job and a special guest (one of Anthony's ex-gfs) joins him for a game of This or That!   Show Notes: https://thegarciadiaries.com/show-notes-episode-four-cranio-baby   Follow us on Instagram: @thegarciadiariespodcast @thegarciadiaries @sirgarciadiaries

In episode four, Anthony and Bethanie share intimate details of Deuce's craniosynostosis journey from beginning to end - with lots of laughs and a few tears. Bethanie also shares her fears with Anthony quitting his job and a special guest (one of Anthony's ex-gfs) joins him for a game of This or That!   Show Notes: https://thegarciadiaries.com/show-notes-episode-four-cranio-baby   Follow us on Instagram: @thegarciadiariespodcast @thegarciadiaries @sirgarciadiaries

Yvonne Gutierrez MD and Parul Bhatia, MD discuss the physical exam findings associated with single suture craniosynostosis (SSCS), posterior positional plagiocephaly and posterior plagiocephaly secondary to lambdoid CS. They also talk about the two most commonly used surgical techniques used to correct SSCS and what is known about the neuro-developmental outcomes associated with SSCS.   There's so much more practice changing audio each month when you subscribe to the full show. Click here to sign up today!

Craniosynostosis with Aditee Ambardekar

Craniosynostosis

Pellicer E, Siebold BS, Birgfeld CB, Gallagher ER. Evaluating Trends in Headache and Revision Surgery following Cranial Vault Remodeling for Craniosynostosis. Plast Reconstr Surg. 2018 Mar;141(3):725-734

We flipped the mic this time. Emmy-Nominated producer and filmmaker Trevor Baierl interviewed me about my book Beyond the Grip of Craniosynostosis. It's the most honest (somewhat reluctantly) I've ever talked about the congenital birth defect. If you listen, I only ask that you listen until the very end, please. It all comes back around. You'll learn way too much about me and Trevor, for sure. I hope you enjoy.

In this first episode of the second season of this podcast, we hear from a self-proclaimed "crunchy granola mom" Nina, whose fourth child was born with what she calls "a funny shaped head."  Nina goes on to describe her son's first few weeks of life and her appointments with her pediatrician and an osteopathic doctor. With little to no help from the osteopathic doctor, she trusted her instincts and returned to her pediatrician who then referred her to a surgeon at Children's National Medical Center in Washington D.C. and would learn that her son had craniosynostosis.  Nina then discusses their surgical journey and all that in entailed. In addition to the stress of building a new business and homeschooling three other older children, Nina talks about the challenges and emotions that she felt at that time. She also talks about how her view of what a hospital is like has changed and how she talked to her older children about what Cohen was going through.  She attributes the help of her friends and church congregation to helping her family cope with this experience.  If you would like to follow along with Nina and her family, you can find her on Instagram or through her family's wellness business, True Whole Human.     

Episode 31 | Replacing Hope with Planning in Leadership and Life with Rhett Burden Facebook Page: Rhett Burden Twitter: @Rhett_Burden www.royallymelanated.com If your actions inspire others to dream more, learn more, do more and become more, you are a leader. These iconic words spoken by Lao Tzu, perfectly describe Rhett R. Burden. Born with a rare cranial birth defect, Craniosynostosis, Rhett overcame social, intellectual and health deficiencies to become the leader he is today. Craniosynostosis rendered him intellectually inept early on in life and has left a permanent scar down the middle of his head. Despite the physical scars left by his birth defect, Rhett was inspired by his single parent mother to defy, not only the statistics that Doctors predicted because of his disease, but also the societal stereotypes about black men. Like you, Rhett has seen leadership and success defined numerous ways over the years. Rhett delivers inspirational messages to audiences who are looking to --- Support this podcast: https://anchor.fm/themindfulrebel/support

About 1 in 2,000 babies is affected by craniosynostosis, in which the sutures of the skull bones close too early. This leads to an abnormally shaped head not related to external factors.Craniosynostosis can be hereditary and accompany other congenital defects or occur randomly in otherwise healthy children with normal intelligence.Listen as Kamlesh Patel, MD, Washington University pediatric plastic and reconstructive surgeon at St. Louis Children’s Hospital, explains how this condition is treated and how the patient might be affected in the long term.

Sleep Architecture Linked to Airway Obstruction and Intracranial Hypertension in Children with Syndromic Craniosynostosis. Spruijt B, Mathijssen IM, Bredero-Boelhouwer HH, Cherian PJ, Corel LJ, van Veelen ML, Hayward RD, Tasker RC, Joosten KF. Sleep Architecture Linked to Airway Obstruction and Intracranial Hypertension in Children with Syndromic Craniosynostosis. Plast Reconstr Surg. 2016 Dec;138(6):1019e-1029e.

Episode 008 Rhett R. Burden Author, Keynote Speaker, Workshop Facilitator, & College Administrator www.royallymelanated.com Twitter: @Rhett_Burden If your actions inspire others to dream more, learn more, do more and become more, you are a leader. These iconic words spoken by Lao Tzu, perfectly describe Rhett R. Burden. Born with a rare cranial birth defect, Craniosynostosis, Rhett overcame social, intellectual and health deficiencies to become the leader he is today. Craniosynostosis rendered him intellectually inept early on in life and has left a permanent scar down the middle of his head. Despite the physical scars left by his birth defect, Rhett was inspired by his single parent mother to defy, not only the statistics that Doctors predicted because of his disease, but also the societal stereotypes about black men. Like you, Rhett has seen leadership and success defined numerous ways over the years. Rhett delivers inspirational messages to audiences who are looking to gain t --- Support this podcast: https://anchor.fm/themindfulrebel/support

Craniosynostosis: Modern Treatment Strategies—click here to listen. In this podcast, topic editor Dr. Mark Krieger of  the University of Southern California, Los Angeles, speaks with Dr. Jennifer Kosty of the University of Cincinnati, Ohio.  They discuss Dr. Kosty and colleagues’ article “Insights into the development of molecular therapies for craniosynostosis,” which appears in this month's issue. […]

The balance between WNT and FGF signaling influences the mode of bone formation in the skull.