Podcasts about walk ms

Welcome to Episode 303 of the Spun Today Podcast—your home for honest conversations about writing, creativity, and the journeys that shape us. I'm your host, Tony Ortiz, and today we're releasing a truly special episode to honor World MS Day. In this heartfelt conversation, I sit down with my wife, Zoila Ortiz, to share her powerful story of living with multiple sclerosis. We dive deep into her first symptoms, the uncertainty of diagnosis, and the emotional and physical challenges that come with MS. Zoila walks us through her search for information, the importance—and dangers—of online self-diagnosis, and the strength found in community. Through candid discussion, Zoila offers an inside look at adapting to adversity, the rollercoaster of medications (Glatiramer by injection (Copaxone) and Fingolimod (Gilenya) to the current day infusion Rituximab which is a monoclonal antibody). We touched on clinical trials, and the vital role of support systems. She talks openly about how MS can impact confidence, independence, and daily routines—but also about how determination and a strong mindset can turn even the most daunting obstacles into new paths forward. We dig into the importance of raising awareness, supporting one another, and using our platforms to connect and inspire. Tune in for a conversation about resilience, empathy, and the healing power of storytelling—and learn how you, too, can advocate for others and yourself.   The Spun Today Podcast is a Podcast that is anchored in Writing, but unlimited in scope.  Give it a whirl.      Twitter: https://twitter.com/spuntoday  Instagram: https://www.instagram.com/spuntoday/  YouTube: https://www.youtube.com/@spuntoday   Website: http://www.spuntoday.com/home  Newsletter: http://www.spuntoday.com/subscribe    Links referenced in this episode:      Follow Zoila: @melodyrosa2083   What is Multiple Sclerosis video from ASAP Science: https://www.youtube.com/watch?v=Naecv3h868c   To donate for MS research or partake in activities like Bike MS, Walk MS, or just to learn more, check out the National MS Society: http://www.nationalmssociety.org/     Jpmetz YouTube Page: https://www.youtube.com/@jpmetz     Get your Podcast Started Today! https://signup.libsyn.com/?promo_code=SPUN (Use Promo code SPUN and get up to 2-months of free service!)   Check out all the Spun Today Merch, and other ways to help support this show! https://www.spuntoday.com/support     Check out my Books Make Way for You – Tips for getting out of your own way ÁBRЕТЕ CAMINO: CONSEJOS PARA DEJAR DE SER TU PROPIO OBSTÁCULO (Spanish Edition) FRACTAL – A Time Travel Tale Melted Cold – A Collection of Short Stories   http://www.spuntoday.com/books/ (e-Book, Paperback and Hardcover are now available)   Fill out my Spun Today Questionnaire if you're passionate about your craft.  I'll share your insight and motivation on the Podcast: http://www.spuntoday.com/questionnaire/     Shop on Amazon using this link, to support the Podcast: https://amzn.to/4km592l      Shop on iTunes using this link, to support the Podcast: https://itunes.apple.com/WebObjects/MZStore.woa/wa/viewTop?genreId=38&id=27820&popId=42&uo=10   Shop at the Spun Today store for Mugs, Notebooks, T-Shirts and more: https://spuntoday-shop.fourthwall.com/   Music: https://www.purple-planet.com   Outro Background Music: https://www.bensound.com   Spun Today Logo by: https://www.naveendhanalak.com/   Sound effects are credited to: http://www.freesfx.co.uk   Listen on: ApplePodcasts | Spotify | Pocket Casts | YouTube | Website

“Is it ever enough… or are we always waiting for the next breakthrough, the next voice, the next reason to hope?” We found ourselves in an unexpected place for this episode: talking about Multiple Sclerosis (MS) through the lens of the NFL Draft. Of course, the #1 overall draft pick and Heisman Trophy winner Fernando Mendoza was making lots of headlines, but the stories went way beyond his leadership on the football field. Mendoza also was gaining attention for championing efforts to raise awareness and funding for research to end MS, the disease which his mom, Elsa, has lived with since 2008. So when a high-profile moment shines a spotlight on MS, whether it's with the #1 NFL draft pick or a celebrity diagnosis, it raises a bigger question: What do we actually want from that attention? Visibility definitely opens the doors for MS advocacy and research, but it can also create comparisons that don't reflect the reality of living with MS. As with everything in MS, there is more than one answer. In this episode, we explore the complicated mix of MS awareness, expectations, frustration, and hope that comes with seeing Multiple Sclerosis represented in the public eye and across media. We talk about: The impact of celebrity MS stories on awareness and perception Why increased visibility doesn't always lead to a cure for MS How different voices shape the narrative around chronic illness and disability Why “control what you can control” matters when living with MS We also reflect on how far the MS community has come—from just a few disease-modifying therapies to more than two dozen today—and why, even with that progress, it still can feel like we're waiting. Here are the links that offer further insights into our conversation: Listen to the MeSsy podcast with Christina Applegate and Jamie-Lynn Sigler Learn more about our Walk MS team, Team MonsterS, and how you can support us Check out the powerful video from Max the Dollar Kid and consider making your $1 donation *** We'd love to hear from you What do you expect when celebrities or public figures talk about MS? Share your thoughts in the comments or email us at acoupletakesonms@gmail.com. Remember to rate, review, and subscribe to A Couple Takes on MS Podcast for two insightful perspectives on this one multifaceted disease

Brian thinks he can Beat Migs at Walk MS! Tune in to find out.

Beat Migs! Tune in for Rosalie, a badass mother and MS survivor!

Last week, about 170 MS activists from across the country gathered in Washington, D.C. to participate in the National MS Society's Public Policy Conference. It's hard to come away from this event and not feel outraged by the stories that are shared, but also inspired by the resilience and bravery of the MS Activists who are willing to share some of the worst moments in their MS journey to make sure that our elected representatives in the House and Senate understand why the legislation we ask them to support is so vitally important.     I met so many truly amazing MS activists at this year's Public Policy Conference, and you'll meet some of them in this week's episode.   We're also sharing survey results that paint a disturbing picture of the human consequences that resulted from losing Congressional funding to support enhanced premium tax credits for ACA Marketplace Enrollees  The National MS Society has invested $2.3 million in 11 research projects focused on women's health issues and MS. We're sharing details of each new research initiative being funded. You'll learn about a clinical trial for a novel investigational therapy for MS and other autoimmune diseases. And we'll tell you about a study that you can participate in from home...and get compensated for your participation! We have a lot to talk about! Are you ready for RealTalk MS??! This Week: We're at the Public Policy Conference  :22 Survey results show the human consequences of losing Congressional funding to support enhanced premium tax credits for ACA Marketplace Enrollees  4:45 The National MS Society invests $2.3 million dollars in research projects focused on women's health issues and MS  7:23 The first healthy participant is dosed in the clinical trial for ICP-538  11:24  An opportunity to participate from home in a clinical trial (and there's compensation!)  12:41 MS Activists David, Cliff, and Michelle share their thoughts on attending the MS Society's Public Policy Conference  15:27 Share this episode  30:10 Next week  30:30 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/448 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Support Jon at WALK MS https://realtalkms.com/walkms JOIN: Become an MS Activist https://nationalmssociety.org/advocacy LISTEN: RealTalk MS Episode 446 -- MS Advocacy and the National MS Society's Public Policy Conference with Steffany Stern https://realtalkms.com/446 SURVEY RESULTS: Cost Concerns and Coverage Changes: A Follow-Up Survey of ACA Marketplace Enrollees https://www.kff.org/public-opinion/a-follow-up-survey-of-aca-marketplace-enrollees PARTICIPATE: A Study to Determine How Well Different Fall Prevention Programs Work for People with Spinal Court Injury and Multiple Sclerosis Email for More Information: DpQol-FallPrev@illionois.edu JOIN: The RealTalk MS Facebook Group https://facebook.com/groups/realtalkms REVIEW: Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on X, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 448 Guests: David Silbaugh, Cliff Currie, and Michelle Constantine Hibbs Privacy Policy

In 1988, there were just 42 Walk MS events, raising approximately $4 million. In 2025, there were 170 events across the country that raised over $30 million. As the largest private funder of MS research in the world, the National MS Society relies on funds raised at events like Walk MS to continue supporting the work that brings us closer to cures.   This week, Brigitte Delaney, an amazing fundraiser and captain of the Many Sisters Walk MS team, shares her story, talks about the origin of the Many Sisters team, and offers her recipe for successful fundraising. We're also sharing study results that show adhering to the MIND diet slows brain aging (and we'll explain why that matters to someone living with MS) We'll tell you about NG01, a remyelinating cell therapy that just received an FDA designation that will accelerate its development. You'll learn about CoPilot Health, Microsoft's new AI health chatbot. And we're sharing study results that indicate people who receive their MS diagnosis over the age of 50 tend to experience a more severe MS disease course. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: It's WALK MS!  :22 Study results show that adherence to the MIND diet slows brain aging  1:24 The FDA grants a designation that accelerates development of a remyelinating cell therapy  4:42 Microsoft launches CoPilot Health, an AI health chatbot  7:17  Study results indicate that people who are diagnosed over the age of 50 often experience a more severe MS disease course  9:32 Brigitte Delaney introduces us to the Many Sisters WALK MS team  12:07 Share this episode  22:28 Next week  22:48 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/447 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Support Jon at WALK MS https://realtalkms.com/walkms JOIN: Become an MS Activist https://nationalmssociety.org/advocacy STUDY: Adherence to the MIND Diet and Longitudinal Brain Structural Changes Over a Decade: Evidence from the Framingham Heart Study Offspring Cohort https://jnnp.bmj.com/content/early/2026/3/11/jnnp-2025-336957 STUDY: Effect of Late-Onset on Multiple Sclerosis Phenotype and Outcome: Evidence from a Multi-National Registry https:/link.springer.com/article/10.1007/s00415-026-13632-4 JOIN: The RealTalk MS Facebook Group https://facebook.com/groups/realtalkms REVIEW: Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on X, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 447 Guests: Brigitte Delaney Privacy Policy

175 MS activists are heading to Washington, D.C. next week for the National MS Society's Public Policy Conference. Their mission: to bring the concerns of the MS community directly to lawmakers on Capitol Hill.  When it comes to the legislative support for healthcare and medical research, it's no secret that these are unusual times. Joining me to brief us on the National MS Society's ongoing advocacy efforts and give us a sneak peek at the specific legislative issues we'll be taking to Capitol Hill is the National MS Society's Vice President of Advocacy, Steffany Stern. We'll also share updated results from an important study that show the risk of developing MS if a close relative is living with the disease is significantly higher than researchers originally thought. And we'll give you all the details of a Phase 1 clinical trial that's focused on a novel approach to CAR-T cell therapy for MS. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: Preparing for the MS Society's Public Policy Conference  :22 I'm asking for your support:  1:37 An update to a 2015 study shows close relatives of people living with MS are 100 times more likely than the general population to develop MS  2:15 A novel approach to CAR-T cell therapy for MS is recruiting for a Phase 1 clinical trial   4:26 Steffany Stern, the Vice President of Research at the National MS Society, shares a major advocacy win and previews next week's Public Policy Conference in Washington, D.C.  7:27 Share this episode  33:04 Next week  33:25 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/446 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Support Jon at WALK MS https://realtalkms.com/walkms JOIN: Become an MS Activist https://nationalmssociety.org/advocacy STUDY: A Prospective Study of Individuals at Risk of Multiple Sclerosis Informs the Design of Primary Prevention Studies https://onlinelibrary.wiley.com/doi/10.1002/acn3.70340 GEMS Study Recruitment https:/nationalmssociety.org/news-and-magazine/news/ms-study-alert-gems RealTalk MS Ep. 439: Preventing MS with Dr. Bruce Bebo https://realtalkms.com/439 PARTICIPATE: A Study to Assess the Safety and Clinical of Azer-cel in Participants with B-cell Mediated Autoimmune Disorders https://clinicaltrials.gov/study/NCT06680037/#contacts-and-locations JOIN: The RealTalk MS Facebook Group https://facebook.com/groups/realtalkms REVIEW: Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 446 Guests: Steffany Stern Privacy Policy

It's MS Awareness Week, and this year we're diving into a theme that hits home for millions: Unseen MS. Multiple sclerosis is a master of disguise; it can be entirely invisible to the naked eye while remaining profoundly life-altering for the person living it. In this episode, we're exploring the spectrum of the MS experience through two distinct, yet deeply connected stories.  First, you'll hear from RealTalk MS team member Kristine Werner Ozug. Kristine shares what it's like to navigate a world that doesn't always see her struggle, and how her "mostly invisible" MS  symptoms still dictate the rhythm of her daily life. Then, you'll meet the two Kims (and a third). Kim W and Kim P, have been together for 16 years. They both live with MS—but in very different ways. While Kim P has navigated RRMS for 18 years with largely invisible symptoms, Kim W was diagnosed with PPMS just three years ago and faces much more visible physical challenges. Joining our conversation with Kim and Kim is Kim Fredsall, a physical therapist at Gaylord Specialty Healthcare, who provides expert context on bridging the gap between diagnosis and daily management. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: It's MS Awareness Week  :22 Kristine Werner Ozug shares her story  1:24 Kim W. and Kim P. share their story 24:49 Share this episode  39:14 Next week  39:34 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/445 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Support Jon at WALK MS https://realtalkms.com/walkms JOIN: The RealTalk MS Facebook Group https://facebook.com/groups/realtalkms REVIEW: Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 445 Guests: Kristine Werner Ozug, Kim P, Kim W, and Kim Fredsall Privacy Policy

You know them by their trade names such as Ozempic, Wegovy, Mounjaro, and Zepbound. This class of medications is known as GLP-1 receptor agonists. And while they are best known for managing diabetes and promoting weight loss, researchers are finding that these drugs are also effective in a broad range of other health conditions. So, what about MS? My guest this week is Dr. Ellen Mowry, the principal investigator of a clinical trial to determine whether a GLP-1 drug can reduce brain inflammation and provide neuroprotection in people living with progressive MS. We're sharing details about the discovery of a new biomarker that not only confirms an MS diagnosis but also predicts the severity of an individual's disease course in the years ahead. We'll tell you about three studies focused on better managing some of the most common MS symptoms and funded by the International Progressive MS Alliance. And we'll explain how Merck and the Mayo Clinic are partnering to build a first-of-its-kind drug discovery platform using AI. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: A GLP-1 for MS?  :22 I'm asking for your support:  1:31 Researchers discover biomarkers that can predict future disease course  2:13 The International Progressive MS Alliance invests $8.1 million in global studies that address the most common MS symptoms   5:44 Merck and the Mayo Clinic collaborate on AI-driven drug discovery platform  10:02 Dr. Ellen Mowry discusses the clinical trial to determine whether a GLP-1 drug can reduce inflammation in the central nervous system and offer neuroprotection to people with progressive MS  12:20 Share this episode  30:17 Next week  30:38 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/444 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Support Jon at WALK MS https://realtalkms.com/walkms STUDY: Large-Scale Proteomics Across Neurological Disorders Uncovers Biomarker Panel and Targets in Multiple Sclerosis https://pubmed.ncbi.nlm.nih.gov/41747728 International Progressive MS Alliance https://progressivemsalliance.org JOIN: The RealTalk MS Facebook Group https://facebook.com/groups/realtalkms REVIEW: Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 444 Guests: Dr. Ellen Mowry Privacy Policy

Welcome back to the third and final part of our coverage of the 2026 ACTRIMS Forum. This week's episode bridges the gap between groundbreaking clinical research and the nuanced reality of living with MS every day. First, we'll dive into the "before" and "after" of a diagnosis, starting with Dr. Helen Tremlett's insights into the MS prodrome—those subtle, early signs that appear years before typical MS symptoms. We'll also talk with Dr. Tremlett about how other health conditions can predict long-term outcomes in sometimes surprising ways.   Dr. Ilana Katz Sand shares her latest research on the connection between diet, MRI findings, and clinical disability. Dr. Katz Sand also shares her list of foods you want to include and those you need to exclude when you choose the MIND diet. And Dr. Katz Sand explains the complementary roles of lifestyle choices and disease-modifying therapies in creating the most effective MS treatment plan. Finally, we ground these scientific advancements in the lived experience as Kathy Smith joins us to challenge the clinical labels we use to describe MS, questioning whether terms like "relapsing-remitting" or "secondary-progressive" truly capture the day-to-day reality of her two-decade journey with the disease. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: The 2026 ACTRIMS Forum (Part 3)  :22 Dr. Helen Tremlett discusses the prodromal phase of MS, which comorbidities are predictive of better or worse patient outcomes, and the role of the environment in pediatric MS  1:19 Dr. Ilana Katz Sand shares her latest research on the impact of diet on MS  10:44 As someone who has lived with MS for two decades, Kathy Smith takes on the question of whether the current labels like 'relapsing-remitting' or 'secondary-progressive' actually describe what life is like on a day-to-day basis for someone living with MS  22:35 Share this episode  34:29 Next week's episode  34:49 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/443 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Support Jon at WALK MS https://realtalkms.com/walkms Find out about ABLEnow Accounts https://ablenow.com JOIN: The RealTalk MS Facebook Group https://facebook.com/groups/realtalkms REVIEW: Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 443 Guests: Dr. Helen Tremlett, Dr. Ilana Katz Sand, and Kathy Smith Privacy Policy

Welcome back to Part Two of our coverage of the 2026 ACTRIMS Forum. This week, we shift our focus to emerging therapies and clinical insights that are re-shaping the future of MS care. From the latest information on stem cell transplantation to evolving treatment strategies to the labels used to describe MS, we're breaking down the complex science into the conversations that matter most to the MS community.   Joining me to discuss one of the most significant presentations from the 2026 ACTRIMS Forum is Dr. Jeffrey Cohen, who opened the event with the Kenneth P. Johnson Memorial Lecture. Dr. Cohen's lecture, "AHSCT: Current Status and Remaining Questions," tackled a topic of massive interest to both clinicians and the MS community: Autologous Hematopoietic Stem Cell Transplantation (AHSCT). Often described as "resetting" the immune system, AHSCT is a complex and life-changing procedure that continues to evolve.  In our conversation, Dr. Cohen delves deeper into his lecture, discussing transplant efficacy, the best candidates for AHSCT, the optimal time to consider AHSCT, and how people living with MS may qualify to participate in a clinical trial comparing the benefits of AHSCT with those of high-efficacy disease-modifying therapies. Joining me for a deep dive into the future of MS care is Dr. Daniel Ontaneda. Our wide-ranging conversation explores the cutting edge of clinical practice and research, including the "early vs aggressive" treatment debate, how incorporating new imaging biomarkers will lead to faster, more reliable, and more accurate MS diagnoses, and whether the current disease classifications still serve the best interests of patient care.   While MS research conferences like the ACTRIMS Forum are never short on world-class expert opinions and groundbreaking data, one perspective is often missing from the room: the voice of someone living with the disease. That's why I was so glad to have Kristine Werner Ozug, a valued member of the RealTalk MS team, on the ground with me. As someone living with MS, Kristine brings a vital lens to these scientific sessions. After the final gavel fell, I sat down with her to get her "patient-first" perspective on the research that mattered most to her and what she's taking away from this year's Forum. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: The 2026 ACTRIMS Forum (Part 2)  :22 Dr. Jeffrey Cohen takes us on a deep-dive into Autologous Hematopoietic Stem Cell Transplantation (AHSCT)  1:23 Dr. Daniel Ontaneda discusses the ways that today's MS research will impact tomorrow's MS care 10:44 Kristine Werner Ozug shares her "patient-first" perspective on the research that mattered most to her and what she's taking away from the 2026 ACTRIMS Forum  28:17 Share this episode  43:31 Next week's episode  43:54 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/442 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Support Jon at WALK MS https://realtalkms.com/walkms Find out about ABLEnow Accounts https://ablenow.com JOIN: The RealTalk MS Facebook Group https://facebook.com/groups/realtalkms REVIEW: Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 442 Guests: Dr. Jeffrey Cohen, Dr. Daniel Ontaneda, and Kristine Werner Ozug Privacy Policy

Last week, over 1,400 scientists and clinicians gathered in San Diego, California, at the 2026 Americas Committee for Treatment and Research in Multiple Sclerosis annual meeting, better known as the ACTRIMS Forum.  This week, in Part One of our coverage, you'll hear from three of the experts who presented their research at the ACTRIMS Forum.   Dr. Manuel Friese, a clinician-scientist at the Institute of Neuroimmunology and Multiple Sclerosis at the University Medical Center Hamburg-Eppendorf in Hamburg, Germany, where he serves as the Director of the Center for Molecular Neurobiology, and the Director of the Institute of Neuroimmunology and Multiple Sclerosis, is this year's winner of the Barancik Prize for Innovation in Multiple Sclerosis. I had an opportunity to talk with Dr. Friese about some of his truly remarkable research. Dr. Amit Bar-Or, the Director of the Centre for Neuroinflammation and Experimental Therapeutics (CNET) and Chief of the Division of Multiple Sclerosis (MS) and related disorders at the University of Pennsylvania, presented encouraging results from two important clinical trials. Dr. Bar-Or and I discussed what those results might mean for people living with relapsing-remitting and primary progressive MS. Dr. Haritha Desu, a young investigator at the ACTRIMS Forum, presented her cutting-edge research on how immune cells interact with cells already resident in the brain to drive damage or potentially promote repair. I talked with Dr. Desu about how her work could be key to stopping MS progression independent of relapse activity.  We have a lot to talk about! Are you ready for RealTalk MS??! This Week: The 2026 ACTRIMS Forum  :22 Barancik Prize winner Dr. Manuel Friese discusses his pioneering discoveries  1:34 Dr. Amit Bar-Or shares encouraging results from two important clinical trials  16:27 Dr. Haritha Desu discusses her research  25:27 Share this episode  32:23 Next week's episode  32:42 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/441 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Support Jon at WALK MS https://realtalkms.com/walkms Find out about ABLEnow Accounts https://ablenow.com JOIN: The RealTalk MS Facebook Group https://facebook.com/groups/realtalkms REVIEW: Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 441 Guests: Dr. Manuel Friese, Dr. Amit Bar-Or, and Dr. Haritha Desu Privacy Policy

This past December, the FDA issued a Complete Response Letter to drug manufacturer Sanofi in response to Sanofi's application seeking approval for Tolebrutinib, the first in a new category of investigational disease-modifying therapies to undergo FDA review.    A Complete Response Letter is an official letter from the FDA to a drug manufacturer stating that the agency can't approve a new medicine in its current form. It's not an outright "no" that kills a project; it's more like a "not yet." However, this Complete Response Letter raised some issues which, at first glance, don't appear to be easily fixable. Sanofi has pointed out that the issues raised in the Complete Response Letter were markedly different from the guidance they received from the FDA over the course of this approval process. Sanofi has also indicated that it would work with the FDA to find a path forward for Tolebrutinib. Dr. William Conte, an MS Specialist and a principal investigator in the Phase 3 clinical trial for Tolebrutinib, has published an article responding to the FDA's Complete Response Letter. This week, Dr. Conte joins me to discuss the FDA's action and his response to that action.  We have a lot to talk about! Are you ready for RealTalk MS??! This Week: We're at the 2026 ACTRIMS Forum  :22 Check out the official ACTRIMS Forum Insider podcast!  :42 The FDA's Complete Response Letter about Tolebrutinib  1:09 Dr. William Conte responds to the FDA's Complete Response Letter  4:09 Share this episode  38:10 Next week's episode  38:30 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/440 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Support Jon at WALK MS https://realtalkms.com/walkms Find out about ABLEnow Accounts https://ablenow.com JOIN: The RealTalk MS Facebook Group https://facebook.com/groups/realtalkms REVIEW: Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 440 Guests: Dr. William Conte Privacy Policy

The first coordinated global research strategy to prevent MS has been announced. This week, Dr. Bruce Bebo, the National MS Society's Executive Vice President and Chief Research & Medical Affairs Officer, joins me to explain what MS prevention looks like and how experts plan to achieve this remarkable goal. We'll also tell you who won the 2025 Barancik Prize for Innovation in MS Research, and we'll explain how their groundbreaking research impacts MS care. We're sharing the details of a newly announced partnership designed to reduce delays in getting an MS diagnosis and expand access to MS care in Wisconsin. We'll tell you how an international drug discovery network found that a drug already approved for another condition could also protect nerve cells and promote remyelination. And we'll share research that shows that AI can accurately predict whether someone newly diagnosed with MS will experience progression independent of relapse activity (PIRA) in the three years following their diagnosis. We have a lot to talk about! Are you ready for RealTalk MS??! I'm asking for your support:  :22 This Week: Preventing MS  1:47 Dr. Manuel Friese is the winner of the 2025 Barancik Prize for Innovation in MS Research  2:41 National MS Society announces a partnership to improve time to MS diagnosis and access to MS care in Wisconsin  6:26 An international drug discovery network identifies a drug that protects nerve cells and promotes remyelination  8:05 STUDY: AI accurately predicts progression independent of relapse activity in individuals who are newly diagnosed with MS  10:51 Dr. Bruce Bebo explains the strategy behind the global research initiative to prevent MS  14:48 Share this episode  31:31 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/439 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Support Jon at WALK MS https://realtalkms.com/walkms RealTalk MS Episode 424: I'm a Participant in a Clinical Trial for CAR T-Cell Therapy for MS with Jan Janisch-Hanzlik https://realtalkms.com/424 STUDY: In Silico Screening and Preclinical Validation Identify Bavisant as a Therapeutic Candidate for Multiple Sclerosis https://science.org/doi/10.1126/scitranslmed.ads0633 STUDY: Machine Learning Analysis Applied to Prediction of Early Progression Independent of Relapse Activity in Multiple Sclerosis Patients https://onlinelibrary.wiley.com/doi/10.1111/ene.70417 Find out about ABLEnow Accounts https://ablenow.com JOIN: The RealTalk MS Facebook Group https://facebook.com/groups/realtalkms REVIEW: Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 439 Guests: Dr. Bruce Bebo Privacy Policy

Beat Migs! And we go Straight to the Comments about HARMONICAS?!

Continuing our focus on Disability Pride Month, I started thinking that we all are different, but is disability just another form of different? It's one thing for an adult to stare at me in my power wheelchair and make unintentionally insensitive comments such as, “I wish I had one of those today!” or “Do you have a driver's license for that?” The reality is adults should know better, but such comments open the doors for a constructive conversation and teachable moments. Yet how do we talk to children about people living with disabilities? About people who, in their minds, seem “different.” The immediate reaction from their mannerly parents often is a stern, aggressively whispered phrase like, “Don't stare! That's not nice.” Is this the ideal way for parents to react? How should parents handle these situations with their children? Join us for this episode as Dan and I have a thoughtful conversation with Erica Miedema about the best way to approach this subject with her almost 10-year-old son, Maximus. The three of us delve into different approaches to talking with children who are curious about people with disabilities and how to turn their questions into truly teachable moments. P.S. You may remember Maximus when he was our podcast guest who interviewed us in Episode 51: From the runway to Walk MS. :-) Here are links to sites to help you continue this conversation: • Respecting Differences: How to Talk With Your Child About Disabilities • 10 Strategies for Talking to Kids About Disabilities • People First Language ***** Remember to rate, review and subscribe to A Couple Takes on MS Podcast for two insightful perspectives on this one multifaceted disease.

Not every person could seamlessly tie together the concepts of Step Therapy Reform and the Crap Gap. You just need to leave it to A Couple. Because to us it makes perfect sense to connect: • A bill in the Michigan House of Representatives that will ensure people with Multiple Sclerosis can get the medications they need without detrimental delays to • The stretch between disease-modifying therapy (DMT) infusions when MS symptoms seemingly feel worse. Seriously. We originally thought we were just run down from doing so much over the last several weeks — from traveling to Columbus, Ohio, for a Bruce Springsteen concert to participating in a Walk MS event in Frankenmuth, Dan hurting his back while transferring Jennifer, and everything else we do to make it through each day. Then we realized we each were within several weeks of our scheduled DMT infusion. Could our exhaustion be a direct result of this supposed Crap Gap? Speaking of DMT infusions and the Crap Gap, we capped off our busy few weeks with the virtual MS State Action Day for the National Multiple Sclerosis Society where we addressed legislation for Step Therapy Reform in the State of Michigan (Hint: MS DMTs often are the targets for step therapy). Join us for this conversation where we tackle these topics and offer insights into how our listeners who live in Michigan can get involved in advocating for Step Therapy Reform. Here are links to the sites we discussed in our conversation: • Support Step Therapy Reform – Link for Michigan residents to contact your State Representative urging them to support HB 5339 so individuals living with MS can have access to their doctor-prescribed medications in a timely manner. • What Is the ‘Crap Gap' Between MS Infusions? – MyMSTeam article describing this experience when MS symptoms feel worse in weeks leading up to a DMT infusion. • Talking about the Crap Gap – AnCan Multiple Sclerosis Virtual Support Group, which Jennifer serves as a moderator, recording where members discuss the Crap Gap (among several other engaging topics). • How Springsteen softened this Wolverine to embrace the Buckeye State – Get insights into why Jennifer is emotionally conflicted after what likely is the Bruce Springsteen concert she's ever seen… it just happened to be in Ohio (IYKYK). • Hoyer Lift – Information about the medical equipment we used to transfer Jennifer into and out of bed while Dan recovered from injuring his back. • Stand assist lift devices – Information about the medical equipment we used to transfer Jennifer in the restroom while Dan recovered from injuring his back. • Frankenmuth Walk MS – Learn more about this event and how you can donate to support our team – Team MonsterS. ***** Remember to rate, review and subscribe to A Couple Takes on MS Podcast for two insightful perspectives on this one multifaceted disease.

Walk MS Director Mandi Stevenson joins Wisconsin's Midday News to talk about Walk MS Milwaukee 2024 which is taking place this Sunday. Stevenson describes what is new at the walk this year and what everyone can expect on Sunday. Stevenson also gives updates on the fundraising goal for the walk. If you'd like to donate: https://events.nationalmssociety.org/index.cfm?fuseaction=donorDrive.event&eventID=1885

In the 11 o'clock hour of today's show: -(01:07) 3 Big Things: Pro-Palestinian protests continue on college campuses, Bucks season ends after last night's game 6 loss to the Pacers, and Summerfest is named best fest for value! -(07:23) Greg and Jessica react to last night's Bucks loss and look forward to next season -(12:20) TMJ4 Meteorologist Brendan Johnson forecasts the weekend ahead -(15:03) Walk MS Milwaukee 2024 Director Mandi Stevenson talks about Walk MS this Sunday. Donate: https://events.nationalmssociety.org/index.cfm?fuseaction=donorDrive.event&eventID=1885 -(18:59) ABC News Entertainment Correspondent Jason Nathanson reviews new movies 'Unfrosted' & 'The Fall Guy' -(26:12) Week in Review by WTMJ Reporter Adam Roberts

At Consumers Credit Union, we take pride in supporting numerous charitable causes that are important to our local community. Among the many worthy organizations we partner with, one holds a special place in our hearts - the Multiple Sclerosis Society. On this special episode, we are pleased to bring you an update from Becky Nap, one of our employees, who has shown bravery and resilience living with MS. Becky will share her experience navigating life with this complex disease. We are also joined by Sarah Borst, Director of the Walk MS event. Sarah provides details on this major fundraising event and how our community can participate to help find a cure for MS. 

The Weekend Whassup for Friday, 4/26/2024! The Point keeps you connected to the top 16 things happening around Sheboygan this weekend! (Shout out to the other radio stations that steal this!)  The Sheboygan Jaycees' Dominion of Terror invites you to "TERROR in APRIL'' tonight (Friday) and tomorrow (Saturday) from 7-10 at 2024 N 15th St. in Sheboygan. Eastern Wisconsin's premiere haunted attraction lives again! Kids matinee from 5-7 tomorrow (Saturday). https://www.facebook.com/events/2331059037083736  Erin Sings Ella & Etta - A Tribute to 2 Legends of Jazz and Blues tonight (Friday) at 7 at The Weill Center For The Performing Arts In Downtown Sheboygan! https://www.weillcenter.com/events/jazz-night-backstage-at-the-weill/  Friends of Kohler Andrae State Park invite you to a “WORK PLAY EARTH DAY” event tomorrow (Saturday) morning at 9. Get ready for summer! Help setup and cleanup the park! Refreshments at noon! https://kohlerandraefriends.org/events/work-play-earth-day/  Sheboygan's Theater for Young Audiences presents: Finding Nemo Jr. with showtimes through this weekend at the Howards Grove High School Center for the Arts. https://www.tyasheboygan.org/  Drug Takeback Day is tomorrow (Saturday) from 10-1 at HSHS St. Nicholas Hospital in Sheboygan, Generations in Plymouth, Sheboygan Falls Police Department and Random Lake FIre Department. https://tinyurl.com/4fa6rtbe  The “Kiwanis iPads for Autism 5K Fun Run/Walk” is tomorrow (Saturday) morning at 9 at River Park in Sheboygan Falls. Registration at 7:30. Family/Youth Run/Walk at 8:30. Food and refreshments follow the race. https://wxerfm.com/events/419414/  The “MANE event Casino Night” is tomorrow (Saturday) night at 5 at St Dominic Catholic Church in Sheboygan. Casino games, food, cocktails, silent auction, and raffles. https://wxerfm.com/events/415507/  Sheboygan Theater Company proudly presents: “Rosencrantz and Guildenstern Are Dead” with showtimes through this weekend at 8th Street Ale Haus Taproom in Sheboygan. https://www.stcshows.org/studio-players  Waldo Lions Pork Chop Dinner is tomorrow (Saturday) from 3-7 at Waldo Memorial Hall. Pork chop dinner served with sides and dessert. Raffles, music, prizes! https://wxerfm.com/events/415509/  The Blind Horse Winery in Kohler celebrates their 10th Anniversary this weekend! https://theblindhorse.com/events/  The 2024 Plymouth Dirt Track Racing season kicks off with a guest appearance from the Wisconsin wingLESS Sprint Car Series tomorrow (Saturday) night after 5 at the Fairgrounds in Plymouth! https://www.plymouthdtr.com/  TUSK: The World's #1 Tribute to Fleetwood Mac makes a tour stop tomorrow (Saturday) night at 7:30 at The Weill Center For The Performing Arts in Downtown Sheboygan! https://www.weillcenter.com/events/tusk/  Walk MS: Sheboygan is Sunday morning at 9 at Blue Harbor in Sheboygan. Walk MS is the largest gathering in the MS movement. Be a part of this powerful event! https://wxerfm.com/events/405267/  The Kettle Karvers 31st Annual Carving Show is Sunday from 10-4 at Emil Mazey Hall in Sheboygan. Free admission! Wood carving tool vendors, Chainsaw carver, Food and Beverages too! https://wxerfm.com/events/412703/  The Road America AutoCross Series hits the track Sunday at Elkhart Lake's Road America! https://www.facebook.com/events/405982582020960  Zion Lutheran Church in New Holstein invites you to their annual Potato Pancake Supper, Sunday from 3-6. All You Can Eat Potato and Buttermilk Pancakes! https://wxerfm.com/events/419530/ See omnystudio.com/listener for privacy information.

Staci & Hutch are joined by Leadership Coach JC Lippold to discuss the upcoming Walk MS event on May 5th at Minnehaha Falls Park. They discuss dealing with Moon's diagnosis, feeling connected to MS related events, and why JC is committed to the cause.You can hear Staci & Hutch LIVE 2-7pm on 94.5 KS95!! Learn more about your ad choices. Visit podcastchoices.com/adchoicesSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Staci & Hutch are joined by Leadership Coach JC Lippold to discuss the upcoming Walk MS event on May 5th at Minnehaha Falls Park. They discuss dealing with Moon's diagnosis, feeling connected to MS related events, and why JC is committed to the cause. You can hear Staci & Hutch LIVE 2-7pm on 94.5 KS95!! Learn more about your ad choices. Visit megaphone.fm/adchoices

Gregory, and guest co-host, Julie Ziemann, from the Star of Saugatuck, talk about the goings on in the Saugatuck/Douglas area.  Show guests today include: Drew, from Mitten Brewing Company-Saugatuck; and Sarah Donavan discussing Walk MS.  Happy Sunday Funday.  3-10-24See omnystudio.com/listener for privacy information.

Ryan Gorman hosts an iHeartRadio nationwide special featuring Robin Nunley, spokesperson for the National MS Society. Robin Nunley joins the show for MS Awareness Week to discuss multiple sclerosis, resources available for those diagnosed with the disease, research underway to find a cure, and their annual Walk MS event.

Experts often describe grief in five or seven stages. If only life with Multiple Sclerosis could be so efficiently contained. Shock. Denial. Anger. Bargaining. Depression. Testing. Acceptance. This all can happen each day before we get out of bed. Yes, we are eternally optimistic and look on the bright side of things under the worst of circumstances. But even the rosiest colored glasses can't see past the harsh realities we face with this progressive disease. We still require our regular moments to mourn. Join us for this frank and candid discussion about this very emotional topic and how even the happiest of times can blindside us to simultaneously spiral through several – if not all seven – stages of grief in a matter of minutes. Grief is real. And so is grace, which is what we all owe to ourselves to give us the time we need to mourn in order to find the strength to rise up and move forward. Here are the links we reference for you to follow up on: • MS: Why I Take a Day to Grieve the Loss of the Old Me – Healthgrades article written by MS advocate Julie Stamm • Taking on PT & exercise with Heather Schoen – A Couple Takes on MS Podcast episode featuring Jennifer's first physical therapist and legendary Team MonsterS member • 5 coping strategies for being diagnosed with MS – MS Focus Magazine article by MS advocate Matt Cavallo • From the runway to Walk MS – A Couple Takes on MS Podcast episode featuring 8-year-old Maximus Miedema, one of the top fundraisers for Team MonsterS, who turned the mic and interviewed us about Walk MS • Tips for a Positive Outlook When You Have MS – U.S. News & World Report patient advice article • Central Michigan University Doctor of Physical Therapy – For information on the program that has done so much to support us and the National MS Society for the past 18 years • I can't walk, but I still Walk MS – Our blog post highlighting the images and people behind Team MonsterS and Walk MS 2023 • Team MonsterS – To donate to our Walk MS Frankenmuth team

This an episode that got very personal for the two of us, but Jennifer took it even more personally. What an amazing moment to have a candid conversation about physical therapy, exercise and Multiple Sclerosis with Heather Schoen – the first physical therapist Jennifer saw shortly after she was diagnosed with MS more than 25 years ago. Heather is the Director of Clinical Education of the PTA Program at Baker College in Owosso, Michigan. The connection between Jennifer and Heather didn't end when the last of the prescribed PT sessions concluded. No, they've remained dear friends for the more than two decades that have followed. How dear? How about the fact that Heather attended our wedding in 2005, has been a member of Jennifer's Walk MS team each year since it began in 1998 and will join us again this year for Walk MS in Frankenmuth. Join us as we chat with Heather and get her professional insights into the value of PT and exercise for people living with MS through questions such as what exercise she recommends, why patients with MS need to exercise and what are the safety issues people with MS need to consider? Here are the links we reference for you to follow up on: • Exercise ­­– National Multiple Sclerosis Society resource that provides a comprehensive overview of exercise and physical activity with MS • MS exercise guidelines – Article produced by the National Center on Health, Physical Activity and Disability • Exercise and Multiple Sclerosis – Fact sheet developed by Cleveland Clinic • Team MonsterS – To join or donate to our Walk MS Frankenmuth team

There is a lot of momentum and several firsts in this episode: • It starts with Jennifer sharing insights into her experiences modeling in Central Michigan University's Threads Fashion Show that featured accessible fashion for the first time. • It ends with the first time we feature a special guest – 8-year-old Maximus Miedema – who came to our house with a list of insightful questions to interview us about what MS is and why it's important for us to participate in Walk MS on May 13. About Threads Accessibility was in fashion at CMU, and Jennifer was part of it. “… I was included. Non-traditional 48-year-old, plus-size me. Non-walking, power wheelchair driving me. They wanted to include me. …” We discuss why this was such an incredible experience for her and other models who use assistive devices and, and we imagine how it likely was the same for all the students who designed fashionable accessible clothing. About Maximus and Walk MS What can we tell you about our 8-year-old friend Maximus? In a nutshell, he is: • A dynamic person with a kind and huge heart who has participated as a member of our Walk MS team – Team MonsterS – long before he could walk. • The son of our great friends Adam and Erica Miedema, who have joined us as members of Team MonsterS long before Maximus was born. • Among the top 25 fundraisers at last year's Walk MS in Frankenmuth, Michigan, raising a total of $1,080. Maximus gets behind the mic and turns the interview tables on us to hit us with questions as fundamental as, “What is Multiple Sclerosis?” to as hard-hitting as, “Are you guys famous at the MS Walk?” Here are the links we reference for you to follow up on: • Inside accessible fashion: My modeling moments – Take a few minutes to check out this photo/video essay to get inside Jennifer's mind as she rolled down the runway and to follow the path that made her a model. • Taking on Threads & accessible fashion – Join us for this episode of our podcast where we have an engaging conversation with Ian Mull, the Threads advisor and CMU Fashion Merchandising and Design faculty member. • Walk MS – Learn more about this National Multiple Sclerosis Society event and how you can register to participate or donate to support the effort. • Donate to Maximus Miedema – Follow this link to directly donate to our friend Maximus and help him reach his $1,000 fundraising goal for this year's Walk MS.

Hometown musicians are ready to perform for you this week. Show your support for Walk MS on Saturday, and don't miss out on details about a BBQ Bash and Artists 'Round the Square weekend events. Plus, a new catalog is coming your way from The Enrichment Academy which means it's also time for a Learn & Grow Expo. 

Today on Valentine in the Morning, Valentine tells jokes in an okay irish accent, a mermaid shows up, and Jon roasts Val a little too hard!Register with or donate to Team Jillian for Walk MS:https://news.iheart.com/featured/valentine-in-the-morning/content/2023-03-03-team-jillian-is-back-for-its-16th-year-at-walkms/

In honor of Women's History Month, ED reflects on his relationship with his mother, Celeta Hunter, who gave birth to him at 17-years-old, graduated at the top of her class and gave up a full tuition scholarship to nurture and care for him. ED also touches on the importance of having a healthy relationship with your parents, specifically your mother. S/O to All the Mothers around the world raising beautiful children! Is your relationship with your mother healthy? If not, is it something that can be fixed? If so, make it happen By Any Means! --- Send in a voice message: https://anchor.fm/dreamsbyanymeans/message

This is Derek Miller Speaking on Business. Nearly one million people live with multiple sclerosis in the United States. However, The National MS Society is looking to change that and has the vision of a world free of MS. Here's Idaho, Nevada and Utah Chapter Development Manager Anja McCracken with more. ANJA MCCRACKEN: The National MS Society is a movement by and for all people affected by multiple sclerosis. Multiple sclerosis is a disease that impacts the brain, spinal cord and optic nerves, which make up the central nervous system and controls everything we do. For more than 75 years, we've led the way for discoveries in neurological diseases by being the world's leading private funder of MS research, investing $1.1 billion since 1946. This year 100,000 people will move us closer to a world free of MS through Walk MS, an event series that has raised more than $1 billion since its inception in 1988. Bike MS is the largest charity cycling series in the country. We encourage you to get involved locally through Walk MS, Bike MS or our luncheons and galas. Money raised goes to research, programs and services. Everyone has the power to change the world for people with MS. DEREK MILLER: The National MS Society is working to cure MS while at the same time empowering people affected by MS to live their best lives. For more information, visit the National MS Society website. I'm Derek Miller with the Salt Lake Chamber, Speaking on Business. Originally aired: February 23, 2023

For some, finding love seems like an endless search. Now let's add some MS to the mix. No matter what age you are diagnosed, the question raised is, How do I tell this person about my diagnosis? Elana chats it up about her experience on the dating scene with MS, and how she empowers herself through online social platforms. Have you checked out the MS Girl Gang? If you like to laugh, it might be a resource for you.  Instagram: @msgirlgang Instagram: @thrivingoversurvivingpodcast https://thrivingoversurvivingpodcast.com

For some, finding love seems like an endless search. Now let's add some MS to the mix. No matter what age you are diagnosed, the question raised is, How do I tell this person about my diagnosis? Elana chats it up about her experience on the dating scene with MS, and how she empowers herself through online social platforms. Have you checked out the MS Girl Gang? If you like to laugh, it might be a resource for you.  Instagram: @msgirlgang Instagram: @thrivingoversurvivingpodcast https://thrivingoversurvivingpodcast.com

It that time again! Let check in with Becky Napp and get all the details on the 2022 Walk MS event.

In this out of the ordinary schedule release I sit down with the right hand honyock, Connor, to discuss his contracting MS in his mid twenties and how that has changed his life, mostly for the better. Today is Oklahoma's Walk MS which is an event to raise awareness and money to help research the invisible disease that it is in hopes of one day finding a cure. Connor was first diagnosed in 2017 and it rocked his world, but ironically mostly in a positive way. It opened up his perspective on life and how he was just skating through, apathetically. It caused him to take stock and choose to seek the good in life and since then has put him in a position of purpose in life with deeper connections and empathy. He is now using his experience to build out a business to help people who find themselves, as he would put it, living like "2016 Connor." His story is one of inspiring hope that no matter what life throws at you, good can be found out of the ashes of disaster. If you would like to donate to Connor's WalkMS team or just the cause in general please follow this link to the WalkMS page: WalkMS If you have a Blessings from Tragedy story that you would like to tell please reach out to me through my personal channels or the podcast's pages. The Website --- Send in a voice message: https://anchor.fm/theramblingviking/message Support this podcast: https://anchor.fm/theramblingviking/support

For 20 years now I have been participating in WALK MS, the largest National Multiple Sclerosis Society fundraising event of the year that has always been so crucial in helping people like myself who are living with MS. The money we raise goes towards helping people dealing with this costly disease while also funding the all important research that will finally END MS once and for all. If you haven't already but would like to donate a little something towards this worthwhile cause, here's the link to my personal fundraising page. https://mssociety.donordrive.com/index.cfm?fuseaction=donordrive.participant&participantID=94206 Thanks for your support. --- Send in a voice message: https://podcasters.spotify.com/pod/show/kimberly-albin/message

In this episode, we share how you can support a great cause with a local celebrity, tell you all about the Mad Hatter's (Gin &) Tea Party, and introduce you to Riveters. Geno from Q105 kicks us off by telling us how we can walk to raise awareness and money for multiple sclerosis (MS). He is joined by Sonya Bryson-Kirksey, you might recognize her voice from the Tampa Bay Lightning games, she is the official Lightning Anthem Signer. She gives us all the details on Walk MS happening this weekend in Tampa (1:21). Next, Q105's Roxanne Wilder gets us excited about an experience that combines her favorite things: fun books and great drinks. The very immersive Mad Hatter's (Gin &) Tea Party is coming to the Tampa Bay area with a twist on the popular book (3:57). Then, Kathy from Q105 introduces us to one of her favorite places to hang out on the weekend. Riveters is a local hot spot based on Rosie the Riveter with some of the best specials in town (5:54). Join us as we take you on a journey across all of Tampa Bay. We will show you all that this city has to offer led by the biggest tastemakers in Tampa Bay. We are here to help you Experience Tampa Bay in 10 Minutes or Less! Join us as we take you on a journey across all of Tampa Bay. We will show you all that this city has to offer led by the biggest tastemakers in Tampa Bay. Hosted by Q105’s Roxanne Wilder from the MJ Morning Show and Geno Knight they will be joined each week by a new tastemaker who will fill you in on something you need to check out. From the biggest events and headliners to small community events to the hottest places to eat to the local hidden gems, we will make sure you know what is going on in our area in one easy-to-digest weekly podcast episode. We are more than just beaches and sunshine! A new episode drops every Thursday at 10a. Be sure to subscribe so you don't miss an episode! We would also love to know what you think of the show. Please leave us a 5-star rating and a review.

Host Jeremy C. Park talks with Katie Claiborne, Senior Specialist with the National MS Society, and Andrew Forsdick, board member of the local chapter and Bike MS team captain, who both highlight the mission and efforts of the National Multiple Sclerosis Society. During the interview, Andrew shares some of his personal story living with MS and Katie discusses some of the ways the National MS Society has made tremendous progress over the last 75 years. They then talk about the MS Awareness Week in March, the Walk MS event in Memphis on April 9, and the 38th annual Bike MS: Rockin' Ride on September 10-11, 2022, which are opportunities for the community to get involved and support their efforts in a fun and meaningful way. Visit www.BikeMS.org to learn more about the 38th annual Bike MS: Rockin' Ride. Visit www.WalkMS.org to learn more about the Walk MS event.Visit https://www.nationalmssociety.org. to learn more about the National MS Society.

Walk MS is May 22 in Toledo and Jerry Pickering spoke with Fred about his fund-raising efforts.

It's going to be another packed week filled with activities throughout this community. Three car shows, a resident St. Patrick's Day Parade, and a Learn and Grow Expo are coming your way. Spring Polo is back and The Villages Golf Festival is too. You can support Walk MS 2022 as well as local artists at a few showcases and sales. There are lots of great entertainment options on the calendar this week. And Villages News Network Executive Producer Jill Winters goes one-on-one with Villages bowler Missy Klug to hear about her recent success on the lanes as she prepares for the final rounds of The Properties of The Villages Real Results Tournament. 

This week I welcome Realtor Sonseeahray (Sonni) Harvin  into the studio.Sonni was born and raised on Detroit's west side. She is an alumna of both Renaissance High and Emory University where she received both her undergraduate and graduate degree. Currently, Sonni lives with her three children (2 in college and 1 in middle school) in Oakland County, MI. In this candid conversation, Sonni shares that after her multiple sclerosis diagnosis in 2010, she  began to see the necessity of community. After living most of her young adult years in survival mold focused on rearing her children and finding her occupational footing, Sonni learned through her diagnosis that without having a  community to hold her up, she was not going to be able to maintain the life she had worked so hard to build for her family. So...setting aside the myth of Superwoman, Sonni rolled up her sleeves, committing herself to structuring her life so that her health and the care of her children became center. From that basis she then restructured her view of what community should be. Whew! To learn more about multiple sclerosis and how you can advance treatment and services for individuals navigating this illness please check out National Multiple Sclerosis Society or Walk MS.Follow Sonni on social media @Sonni Sells - The Real Estate SpecialistSonni@YourServiceAnd her website: https://sonnirealestate.com

Morgan Music is a teacher, a support group leader, & so much more. She allows herself to be vulnerable with us and share some difficult things she dealt with as a result of her multiple sclerosis. She has raised over ten thousand dollars for the MS Society. Join me as I chat is up with Morgan Music. www.thrivingoversurvivingpodcast.com Instagram: @thrivingoversurvivingpodcast

Multiple Sclerosis News Today's columnist, Jenn Powell, discusses how Walk MS Fundraising will be a ‘virtual experience' in 2021. Multiple Sclerosis News Today's multimedia associate, Price Wooldridge, reads the column by Ed Tobias, MS Wire, “Don't Let MS Stop You From Grandparenting”. ===================================== Treatment for Relapsing MS Progression | MAYZENT® (siponimod) Read about MAYZENT, a once daily pill that can significantly slow down disability progression in people with relapsing MS. See full prescribing & safety info. https://www.mayzent.com/?utm_source=changeinrms&utm_medium=vanityurl&utm_campaign=novartis_mayzent_2020&utm_content=soundcloud ===================================== Are you interested in learning more about multiple sclerosis? If so, please visit: https://multiplesclerosisnewstoday.com/ ===================================== To join in on conversations regarding multiple sclerosis, please visit: https://multiplesclerosisnewstoday.com/forums/

Every year I say I'm done with fundraising for the National Multiple Sclerosis Society yet here I am again. I signed up to be captain of a small but mighty WALK MS team and since there's no actual WALK event this year due to Covid, I've been forced to be more creative than ever in my fundraising efforts. Asking people for money in this climate is very stressful making me feel more vulnerable than ever because I HATE asking for anything but I guess I HATE this disease more so as long as I'm still able I will do my part to continue the funding so necessary to finding a CURE for this disease once and for all. --- Send in a voice message: https://podcasters.spotify.com/pod/show/kimberly-albin/message

This week, and for the foreseeable future, we're committed to sharing the most updated and reliable information on COVID-19 and MS. Joining me as my guest is Dr. Marwa Kaisey, an Assistant Professor of Neurology specializing in Multiple Sclerosis and Neuroimmunology at Cedars-Sinai in Los Angeles. We're talking with Dr. Kaisey about the things that people need to know about Ocrevus, Tecfidera, Gilenya, and other specific MS disease-modifying therapies in light of COVID-19. Dr. Kaisey will also share information about the status of people living with MS who have already been diagnosed with COVID-19. And we'll even hear about some MS disease-modifying therapies that are being tested as potential treatments for COVID-19. We'll connect you to the video replay of last Friday's Ask An MS Expert webinar. I hope you already consider these weekly webinars with leading MS experts answering your questions to be "can't miss" viewing. We're also talking about the federal government's decision not to re-open enrollment for health insurance under the Affordable Care Act for 39 states, and we'll tell you which 11 states have re-opened enrollment during the pandemic. And we'll share the federal government's guidance, reminding states, healthcare providers, and healthcare facilities that it's a violation of federal law to withhold medical treatment due to disability. (We're also sharing a link to that document that you can download and keep with you on your phone!) We'll review the specific provisions in the Coronavirus Aid, Relief, and Economic Security Act that MS Activists advocated for. And we'll talk about how COVID-19 is already delaying the development and distribution of new MS disease-modifying therapies. We have a lot to talk about! Are you ready for RealTalk MS??! ___________ Check out Episode 3 of the National MS Society's Ask an MS Expert Webinar Series 1:04 Federal government refuses to re-open Affordable Care Act enrollment during pandemic 3:06 Federal government issues guidance to avoid healthcare discrimination based on disability 5:09 COVID-19 is impacting drug development 10:24 My Interview with Dr. Marwa Kaisey 12:00 Share this episode 23:32 Donate to Walk-MS 23:58 ___________ SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/136 ___________ ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.comPhone: (310) 526-2283 ___________ LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Give RealTalk MS a Rating & Review National MS Society's Ask An MS Expert Video Replay What You Need to Know About Coronavirus (COVID-19) COVID-19 Resources for Caregivers The RealTalk MS Continuing the Conversation Facebook Group BULLETIN: Civil Rights, HIPAA, and the Coronavirus Disease 2019 (COVID-19) Federal Coronavirus Response and Economic Stimulus Information Jon's WALK-MS Fundraising Page Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating & Review ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 136 Hosted By: Jon Strum Guests: Dr. Marwa Kaisey Tags: MS, MultipleSclerosis, MSResearch, MSActivist, MSSociety, Ocrevus, Coronavirus, COVID19, RealTalkMS Privacy Policy

Kim is the Vice President of Artist Relations for Mike Davis Productions. She's been managing Pantera for 24 years. She managed Pantera while they were an active, touring band and helped to market them as they transitioned into a legacy act. She has also managed Dimebag Darrell's Estate for the last 5 years. During her 9 years as a manager at Concrete Management, she worked with Pantera, White Zombie, Anthrax, Ministry, Prong, Down, Fear Factory, and more.  She has spent the last 18 years participating & fundraising for Walk MS. Her team has raised over $350,000. You can find her on Instagram @concretekz. Please Note: This episode was recorded on May 17th, before the tragic passing of Vinnie Paul on June 22. A New Level is heavily inspired by Pantera, and will also now be a tribute to the passion and spirit of Vinnie Paul. Kim, we are so sorry for your loss. Email Me: AskBlasko@Gmail.comFollow Me: @Blasko1313 on Twitter & Instagram Facebook: aNewLevelPodcast Please Rate and Review on Apple Podcasts or wherever you listen to this show! Thanks to Musicians Institute, Blake Bunzel, Monster Products and Jabberjaw Media for all your hard work. Thanks to all my guests and listeners for your support!  Learn more about your ad choices. Visit megaphone.fm/adchoices

This Week Lisa Lawrie (@JMOESandBFs) & Rafael Castaneda (@RMCGuitars)are Joined by Jennifer Wilker (@DulceCA17) and Toby Milton (@TMilt) to Discuss the @ARIYNBF Episodes~ "Harley Morenstein" & "Understudies,Talk Therapy, Eight Cans Of Spam" We Talk YouTube Boobs, Taste In Music & Alcohol, Rules Of Donating Shitty Food, Bad Carbs, Last Names, Uneccessary Endings, No Mo Mo Mo, aRT, Hobby Lobby Rage, Grocery Lines, RosenEats and Spam Heros! Also, Lots Of Shout Outs! iTunes Artwork by Ray Morgan (@RayMorganIII) Posted to iTunes by Jason Dix (@Woodloaf) Donate To Fellow BF Ashleys's Walk MS right NOW! https://t.co/6FVPZeWzLY @Oh_Ashually

The Patrol is in full effect! Join Brianne, Jason, Meghan, Ashley and Lisa for “Catch Up”, “All Things Alison”, “JMOE Jabber” AAANND… another Alison Quiz from Superfan Meghan with an AWESOME prize for the winner!! @JMOEPatrol @BSlamin @JmoesAndBobos @WoodLoaf @__Ashually @ZeneraPark BrianneSlamin.com Visit Ashley's Walk MS page to donate or spread the word: http://main.nationalmssociety.org/site/TR/Walk/TXHWalkEvents?px=7258330&pg=personal&fr_id=26247&_ga=1.179933351.287973726.1436879046

The whole gang is together for new exciting @ARIYNBF chatter! You'll get a health update from you favorite little Texan, Ashley, Lisa & Meghan talk smooshing pies in peoples faces, Lisa has a great idea for a new Podcast for #Al & Greg Heller called #ThePodCouple, Jason has a new pet, Vern and we discuss […]