Podcasts about walk ms

Continuing our focus on Disability Pride Month, I started thinking that we all are different, but is disability just another form of different? It's one thing for an adult to stare at me in my power wheelchair and make unintentionally insensitive comments such as, “I wish I had one of those today!” or “Do you have a driver's license for that?” The reality is adults should know better, but such comments open the doors for a constructive conversation and teachable moments. Yet how do we talk to children about people living with disabilities? About people who, in their minds, seem “different.” The immediate reaction from their mannerly parents often is a stern, aggressively whispered phrase like, “Don't stare! That's not nice.” Is this the ideal way for parents to react? How should parents handle these situations with their children? Join us for this episode as Dan and I have a thoughtful conversation with Erica Miedema about the best way to approach this subject with her almost 10-year-old son, Maximus. The three of us delve into different approaches to talking with children who are curious about people with disabilities and how to turn their questions into truly teachable moments. P.S. You may remember Maximus when he was our podcast guest who interviewed us in Episode 51: From the runway to Walk MS. :-) Here are links to sites to help you continue this conversation: • Respecting Differences: How to Talk With Your Child About Disabilities • 10 Strategies for Talking to Kids About Disabilities • People First Language ***** Remember to rate, review and subscribe to A Couple Takes on MS Podcast for two insightful perspectives on this one multifaceted disease.

Not every person could seamlessly tie together the concepts of Step Therapy Reform and the Crap Gap. You just need to leave it to A Couple. Because to us it makes perfect sense to connect: • A bill in the Michigan House of Representatives that will ensure people with Multiple Sclerosis can get the medications they need without detrimental delays to • The stretch between disease-modifying therapy (DMT) infusions when MS symptoms seemingly feel worse. Seriously. We originally thought we were just run down from doing so much over the last several weeks — from traveling to Columbus, Ohio, for a Bruce Springsteen concert to participating in a Walk MS event in Frankenmuth, Dan hurting his back while transferring Jennifer, and everything else we do to make it through each day. Then we realized we each were within several weeks of our scheduled DMT infusion. Could our exhaustion be a direct result of this supposed Crap Gap? Speaking of DMT infusions and the Crap Gap, we capped off our busy few weeks with the virtual MS State Action Day for the National Multiple Sclerosis Society where we addressed legislation for Step Therapy Reform in the State of Michigan (Hint: MS DMTs often are the targets for step therapy). Join us for this conversation where we tackle these topics and offer insights into how our listeners who live in Michigan can get involved in advocating for Step Therapy Reform. Here are links to the sites we discussed in our conversation: • Support Step Therapy Reform – Link for Michigan residents to contact your State Representative urging them to support HB 5339 so individuals living with MS can have access to their doctor-prescribed medications in a timely manner. • What Is the ‘Crap Gap' Between MS Infusions? – MyMSTeam article describing this experience when MS symptoms feel worse in weeks leading up to a DMT infusion. • Talking about the Crap Gap – AnCan Multiple Sclerosis Virtual Support Group, which Jennifer serves as a moderator, recording where members discuss the Crap Gap (among several other engaging topics). • How Springsteen softened this Wolverine to embrace the Buckeye State – Get insights into why Jennifer is emotionally conflicted after what likely is the Bruce Springsteen concert she's ever seen… it just happened to be in Ohio (IYKYK). • Hoyer Lift – Information about the medical equipment we used to transfer Jennifer into and out of bed while Dan recovered from injuring his back. • Stand assist lift devices – Information about the medical equipment we used to transfer Jennifer in the restroom while Dan recovered from injuring his back. • Frankenmuth Walk MS – Learn more about this event and how you can donate to support our team – Team MonsterS. ***** Remember to rate, review and subscribe to A Couple Takes on MS Podcast for two insightful perspectives on this one multifaceted disease.

Walk MS Director Mandi Stevenson joins Wisconsin's Midday News to talk about Walk MS Milwaukee 2024 which is taking place this Sunday. Stevenson describes what is new at the walk this year and what everyone can expect on Sunday. Stevenson also gives updates on the fundraising goal for the walk. If you'd like to donate: https://events.nationalmssociety.org/index.cfm?fuseaction=donorDrive.event&eventID=1885

In the 11 o'clock hour of today's show: -(01:07) 3 Big Things: Pro-Palestinian protests continue on college campuses, Bucks season ends after last night's game 6 loss to the Pacers, and Summerfest is named best fest for value! -(07:23) Greg and Jessica react to last night's Bucks loss and look forward to next season -(12:20) TMJ4 Meteorologist Brendan Johnson forecasts the weekend ahead -(15:03) Walk MS Milwaukee 2024 Director Mandi Stevenson talks about Walk MS this Sunday. Donate: https://events.nationalmssociety.org/index.cfm?fuseaction=donorDrive.event&eventID=1885 -(18:59) ABC News Entertainment Correspondent Jason Nathanson reviews new movies 'Unfrosted' & 'The Fall Guy' -(26:12) Week in Review by WTMJ Reporter Adam Roberts

At Consumers Credit Union, we take pride in supporting numerous charitable causes that are important to our local community. Among the many worthy organizations we partner with, one holds a special place in our hearts - the Multiple Sclerosis Society. On this special episode, we are pleased to bring you an update from Becky Nap, one of our employees, who has shown bravery and resilience living with MS. Becky will share her experience navigating life with this complex disease. We are also joined by Sarah Borst, Director of the Walk MS event. Sarah provides details on this major fundraising event and how our community can participate to help find a cure for MS. 

The Weekend Whassup for Friday, 4/26/2024! The Point keeps you connected to the top 16 things happening around Sheboygan this weekend! (Shout out to the other radio stations that steal this!)  The Sheboygan Jaycees' Dominion of Terror invites you to "TERROR in APRIL'' tonight (Friday) and tomorrow (Saturday) from 7-10 at 2024 N 15th St. in Sheboygan. Eastern Wisconsin's premiere haunted attraction lives again! Kids matinee from 5-7 tomorrow (Saturday). https://www.facebook.com/events/2331059037083736  Erin Sings Ella & Etta - A Tribute to 2 Legends of Jazz and Blues tonight (Friday) at 7 at The Weill Center For The Performing Arts In Downtown Sheboygan! https://www.weillcenter.com/events/jazz-night-backstage-at-the-weill/  Friends of Kohler Andrae State Park invite you to a “WORK PLAY EARTH DAY” event tomorrow (Saturday) morning at 9. Get ready for summer! Help setup and cleanup the park! Refreshments at noon! https://kohlerandraefriends.org/events/work-play-earth-day/  Sheboygan's Theater for Young Audiences presents: Finding Nemo Jr. with showtimes through this weekend at the Howards Grove High School Center for the Arts. https://www.tyasheboygan.org/  Drug Takeback Day is tomorrow (Saturday) from 10-1 at HSHS St. Nicholas Hospital in Sheboygan, Generations in Plymouth, Sheboygan Falls Police Department and Random Lake FIre Department. https://tinyurl.com/4fa6rtbe  The “Kiwanis iPads for Autism 5K Fun Run/Walk” is tomorrow (Saturday) morning at 9 at River Park in Sheboygan Falls. Registration at 7:30. Family/Youth Run/Walk at 8:30. Food and refreshments follow the race. https://wxerfm.com/events/419414/  The “MANE event Casino Night” is tomorrow (Saturday) night at 5 at St Dominic Catholic Church in Sheboygan. Casino games, food, cocktails, silent auction, and raffles. https://wxerfm.com/events/415507/  Sheboygan Theater Company proudly presents: “Rosencrantz and Guildenstern Are Dead” with showtimes through this weekend at 8th Street Ale Haus Taproom in Sheboygan. https://www.stcshows.org/studio-players  Waldo Lions Pork Chop Dinner is tomorrow (Saturday) from 3-7 at Waldo Memorial Hall. Pork chop dinner served with sides and dessert. Raffles, music, prizes! https://wxerfm.com/events/415509/  The Blind Horse Winery in Kohler celebrates their 10th Anniversary this weekend! https://theblindhorse.com/events/  The 2024 Plymouth Dirt Track Racing season kicks off with a guest appearance from the Wisconsin wingLESS Sprint Car Series tomorrow (Saturday) night after 5 at the Fairgrounds in Plymouth! https://www.plymouthdtr.com/  TUSK: The World's #1 Tribute to Fleetwood Mac makes a tour stop tomorrow (Saturday) night at 7:30 at The Weill Center For The Performing Arts in Downtown Sheboygan! https://www.weillcenter.com/events/tusk/  Walk MS: Sheboygan is Sunday morning at 9 at Blue Harbor in Sheboygan. Walk MS is the largest gathering in the MS movement. Be a part of this powerful event! https://wxerfm.com/events/405267/  The Kettle Karvers 31st Annual Carving Show is Sunday from 10-4 at Emil Mazey Hall in Sheboygan. Free admission! Wood carving tool vendors, Chainsaw carver, Food and Beverages too! https://wxerfm.com/events/412703/  The Road America AutoCross Series hits the track Sunday at Elkhart Lake's Road America! https://www.facebook.com/events/405982582020960  Zion Lutheran Church in New Holstein invites you to their annual Potato Pancake Supper, Sunday from 3-6. All You Can Eat Potato and Buttermilk Pancakes! https://wxerfm.com/events/419530/ See omnystudio.com/listener for privacy information.

Staci & Hutch are joined by Leadership Coach JC Lippold to discuss the upcoming Walk MS event on May 5th at Minnehaha Falls Park. They discuss dealing with Moon's diagnosis, feeling connected to MS related events, and why JC is committed to the cause. You can hear Staci & Hutch LIVE 2-7pm on 94.5 KS95!! Learn more about your ad choices. Visit megaphone.fm/adchoices

Gregory, and guest co-host, Julie Ziemann, from the Star of Saugatuck, talk about the goings on in the Saugatuck/Douglas area.  Show guests today include: Drew, from Mitten Brewing Company-Saugatuck; and Sarah Donavan discussing Walk MS.  Happy Sunday Funday.  3-10-24See omnystudio.com/listener for privacy information.

Ryan Gorman hosts an iHeartRadio nationwide special featuring Robin Nunley, spokesperson for the National MS Society. Robin Nunley joins the show for MS Awareness Week to discuss multiple sclerosis, resources available for those diagnosed with the disease, research underway to find a cure, and their annual Walk MS event.

Experts often describe grief in five or seven stages. If only life with Multiple Sclerosis could be so efficiently contained. Shock. Denial. Anger. Bargaining. Depression. Testing. Acceptance. This all can happen each day before we get out of bed. Yes, we are eternally optimistic and look on the bright side of things under the worst of circumstances. But even the rosiest colored glasses can't see past the harsh realities we face with this progressive disease. We still require our regular moments to mourn. Join us for this frank and candid discussion about this very emotional topic and how even the happiest of times can blindside us to simultaneously spiral through several – if not all seven – stages of grief in a matter of minutes. Grief is real. And so is grace, which is what we all owe to ourselves to give us the time we need to mourn in order to find the strength to rise up and move forward. Here are the links we reference for you to follow up on: • MS: Why I Take a Day to Grieve the Loss of the Old Me – Healthgrades article written by MS advocate Julie Stamm • Taking on PT & exercise with Heather Schoen – A Couple Takes on MS Podcast episode featuring Jennifer's first physical therapist and legendary Team MonsterS member • 5 coping strategies for being diagnosed with MS – MS Focus Magazine article by MS advocate Matt Cavallo • From the runway to Walk MS – A Couple Takes on MS Podcast episode featuring 8-year-old Maximus Miedema, one of the top fundraisers for Team MonsterS, who turned the mic and interviewed us about Walk MS • Tips for a Positive Outlook When You Have MS – U.S. News & World Report patient advice article • Central Michigan University Doctor of Physical Therapy – For information on the program that has done so much to support us and the National MS Society for the past 18 years • I can't walk, but I still Walk MS – Our blog post highlighting the images and people behind Team MonsterS and Walk MS 2023 • Team MonsterS – To donate to our Walk MS Frankenmuth team

This an episode that got very personal for the two of us, but Jennifer took it even more personally. What an amazing moment to have a candid conversation about physical therapy, exercise and Multiple Sclerosis with Heather Schoen – the first physical therapist Jennifer saw shortly after she was diagnosed with MS more than 25 years ago. Heather is the Director of Clinical Education of the PTA Program at Baker College in Owosso, Michigan. The connection between Jennifer and Heather didn't end when the last of the prescribed PT sessions concluded. No, they've remained dear friends for the more than two decades that have followed. How dear? How about the fact that Heather attended our wedding in 2005, has been a member of Jennifer's Walk MS team each year since it began in 1998 and will join us again this year for Walk MS in Frankenmuth. Join us as we chat with Heather and get her professional insights into the value of PT and exercise for people living with MS through questions such as what exercise she recommends, why patients with MS need to exercise and what are the safety issues people with MS need to consider? Here are the links we reference for you to follow up on: • Exercise ­­– National Multiple Sclerosis Society resource that provides a comprehensive overview of exercise and physical activity with MS • MS exercise guidelines – Article produced by the National Center on Health, Physical Activity and Disability • Exercise and Multiple Sclerosis – Fact sheet developed by Cleveland Clinic • Team MonsterS – To join or donate to our Walk MS Frankenmuth team

There is a lot of momentum and several firsts in this episode: • It starts with Jennifer sharing insights into her experiences modeling in Central Michigan University's Threads Fashion Show that featured accessible fashion for the first time. • It ends with the first time we feature a special guest – 8-year-old Maximus Miedema – who came to our house with a list of insightful questions to interview us about what MS is and why it's important for us to participate in Walk MS on May 13. About Threads Accessibility was in fashion at CMU, and Jennifer was part of it. “… I was included. Non-traditional 48-year-old, plus-size me. Non-walking, power wheelchair driving me. They wanted to include me. …” We discuss why this was such an incredible experience for her and other models who use assistive devices and, and we imagine how it likely was the same for all the students who designed fashionable accessible clothing. About Maximus and Walk MS What can we tell you about our 8-year-old friend Maximus? In a nutshell, he is: • A dynamic person with a kind and huge heart who has participated as a member of our Walk MS team – Team MonsterS – long before he could walk. • The son of our great friends Adam and Erica Miedema, who have joined us as members of Team MonsterS long before Maximus was born. • Among the top 25 fundraisers at last year's Walk MS in Frankenmuth, Michigan, raising a total of $1,080. Maximus gets behind the mic and turns the interview tables on us to hit us with questions as fundamental as, “What is Multiple Sclerosis?” to as hard-hitting as, “Are you guys famous at the MS Walk?” Here are the links we reference for you to follow up on: • Inside accessible fashion: My modeling moments – Take a few minutes to check out this photo/video essay to get inside Jennifer's mind as she rolled down the runway and to follow the path that made her a model. • Taking on Threads & accessible fashion – Join us for this episode of our podcast where we have an engaging conversation with Ian Mull, the Threads advisor and CMU Fashion Merchandising and Design faculty member. • Walk MS – Learn more about this National Multiple Sclerosis Society event and how you can register to participate or donate to support the effort. • Donate to Maximus Miedema – Follow this link to directly donate to our friend Maximus and help him reach his $1,000 fundraising goal for this year's Walk MS.

Hometown musicians are ready to perform for you this week. Show your support for Walk MS on Saturday, and don't miss out on details about a BBQ Bash and Artists 'Round the Square weekend events. Plus, a new catalog is coming your way from The Enrichment Academy which means it's also time for a Learn & Grow Expo. 

Today on Valentine in the Morning, Valentine tells jokes in an okay irish accent, a mermaid shows up, and Jon roasts Val a little too hard!Register with or donate to Team Jillian for Walk MS:https://news.iheart.com/featured/valentine-in-the-morning/content/2023-03-03-team-jillian-is-back-for-its-16th-year-at-walkms/

In honor of Women's History Month, ED reflects on his relationship with his mother, Celeta Hunter, who gave birth to him at 17-years-old, graduated at the top of her class and gave up a full tuition scholarship to nurture and care for him. ED also touches on the importance of having a healthy relationship with your parents, specifically your mother. S/O to All the Mothers around the world raising beautiful children! Is your relationship with your mother healthy? If not, is it something that can be fixed? If so, make it happen By Any Means! --- Send in a voice message: https://anchor.fm/dreamsbyanymeans/message

This is Derek Miller Speaking on Business. Nearly one million people live with multiple sclerosis in the United States. However, The National MS Society is looking to change that and has the vision of a world free of MS. Here's Idaho, Nevada and Utah Chapter Development Manager Anja McCracken with more. ANJA MCCRACKEN: The National MS Society is a movement by and for all people affected by multiple sclerosis. Multiple sclerosis is a disease that impacts the brain, spinal cord and optic nerves, which make up the central nervous system and controls everything we do. For more than 75 years, we've led the way for discoveries in neurological diseases by being the world's leading private funder of MS research, investing $1.1 billion since 1946. This year 100,000 people will move us closer to a world free of MS through Walk MS, an event series that has raised more than $1 billion since its inception in 1988. Bike MS is the largest charity cycling series in the country. We encourage you to get involved locally through Walk MS, Bike MS or our luncheons and galas. Money raised goes to research, programs and services. Everyone has the power to change the world for people with MS. DEREK MILLER: The National MS Society is working to cure MS while at the same time empowering people affected by MS to live their best lives. For more information, visit the National MS Society website. I'm Derek Miller with the Salt Lake Chamber, Speaking on Business. Originally aired: February 23, 2023

For some, finding love seems like an endless search. Now let's add some MS to the mix. No matter what age you are diagnosed, the question raised is, How do I tell this person about my diagnosis? Elana chats it up about her experience on the dating scene with MS, and how she empowers herself through online social platforms. Have you checked out the MS Girl Gang? If you like to laugh, it might be a resource for you.  Instagram: @msgirlgang Instagram: @thrivingoversurvivingpodcast https://thrivingoversurvivingpodcast.com

For some, finding love seems like an endless search. Now let's add some MS to the mix. No matter what age you are diagnosed, the question raised is, How do I tell this person about my diagnosis? Elana chats it up about her experience on the dating scene with MS, and how she empowers herself through online social platforms. Have you checked out the MS Girl Gang? If you like to laugh, it might be a resource for you.  Instagram: @msgirlgang Instagram: @thrivingoversurvivingpodcast https://thrivingoversurvivingpodcast.com

It that time again! Let check in with Becky Napp and get all the details on the 2022 Walk MS event.

In this out of the ordinary schedule release I sit down with the right hand honyock, Connor, to discuss his contracting MS in his mid twenties and how that has changed his life, mostly for the better. Today is Oklahoma's Walk MS which is an event to raise awareness and money to help research the invisible disease that it is in hopes of one day finding a cure. Connor was first diagnosed in 2017 and it rocked his world, but ironically mostly in a positive way. It opened up his perspective on life and how he was just skating through, apathetically. It caused him to take stock and choose to seek the good in life and since then has put him in a position of purpose in life with deeper connections and empathy. He is now using his experience to build out a business to help people who find themselves, as he would put it, living like "2016 Connor." His story is one of inspiring hope that no matter what life throws at you, good can be found out of the ashes of disaster. If you would like to donate to Connor's WalkMS team or just the cause in general please follow this link to the WalkMS page: WalkMS If you have a Blessings from Tragedy story that you would like to tell please reach out to me through my personal channels or the podcast's pages. The Website --- Send in a voice message: https://anchor.fm/theramblingviking/message Support this podcast: https://anchor.fm/theramblingviking/support

For 20 years now I have been participating in WALK MS, the largest National Multiple Sclerosis Society fundraising event of the year that has always been so crucial in helping people like myself who are living with MS. The money we raise goes towards helping people dealing with this costly disease while also funding the all important research that will finally END MS once and for all. If you haven't already but would like to donate a little something towards this worthwhile cause, here's the link to my personal fundraising page. https://mssociety.donordrive.com/index.cfm?fuseaction=donordrive.participant&participantID=94206 Thanks for your support. --- Send in a voice message: https://podcasters.spotify.com/pod/show/kimberly-albin/message

Tampa Bay Lightning National Anthem Singer Sonya Bryson-Kirksey joins the show this morning to tell us all about Walk MS happening this weekend.

A packed four hours for AM Tampa Bay, as we took over The Ryan Gorman Show today! We've got interviews with Phil Esposito about the Lightning season, Sonya Bryson-Kirksey on Walk MS, Mike Culotta on the Heritage Village Car Show, and Angela Benak on the Sugar Sand Festival at Pier 60.

In this episode, we share how you can support a great cause with a local celebrity, tell you all about the Mad Hatter's (Gin &) Tea Party, and introduce you to Riveters. Geno from Q105 kicks us off by telling us how we can walk to raise awareness and money for multiple sclerosis (MS). He is joined by Sonya Bryson-Kirksey, you might recognize her voice from the Tampa Bay Lightning games, she is the official Lightning Anthem Signer. She gives us all the details on Walk MS happening this weekend in Tampa (1:21). Next, Q105's Roxanne Wilder gets us excited about an experience that combines her favorite things: fun books and great drinks. The very immersive Mad Hatter's (Gin &) Tea Party is coming to the Tampa Bay area with a twist on the popular book (3:57). Then, Kathy from Q105 introduces us to one of her favorite places to hang out on the weekend. Riveters is a local hot spot based on Rosie the Riveter with some of the best specials in town (5:54). Join us as we take you on a journey across all of Tampa Bay. We will show you all that this city has to offer led by the biggest tastemakers in Tampa Bay. We are here to help you Experience Tampa Bay in 10 Minutes or Less! Join us as we take you on a journey across all of Tampa Bay. We will show you all that this city has to offer led by the biggest tastemakers in Tampa Bay. Hosted by Q105’s Roxanne Wilder from the MJ Morning Show and Geno Knight they will be joined each week by a new tastemaker who will fill you in on something you need to check out. From the biggest events and headliners to small community events to the hottest places to eat to the local hidden gems, we will make sure you know what is going on in our area in one easy-to-digest weekly podcast episode. We are more than just beaches and sunshine! A new episode drops every Thursday at 10a. Be sure to subscribe so you don't miss an episode! We would also love to know what you think of the show. Please leave us a 5-star rating and a review.

Host Jeremy C. Park talks with Katie Claiborne, Senior Specialist with the National MS Society, and Andrew Forsdick, board member of the local chapter and Bike MS team captain, who both highlight the mission and efforts of the National Multiple Sclerosis Society. During the interview, Andrew shares some of his personal story living with MS and Katie discusses some of the ways the National MS Society has made tremendous progress over the last 75 years. They then talk about the MS Awareness Week in March, the Walk MS event in Memphis on April 9, and the 38th annual Bike MS: Rockin' Ride on September 10-11, 2022, which are opportunities for the community to get involved and support their efforts in a fun and meaningful way. Visit www.BikeMS.org to learn more about the 38th annual Bike MS: Rockin' Ride. Visit www.WalkMS.org to learn more about the Walk MS event.Visit https://www.nationalmssociety.org. to learn more about the National MS Society.

Walk MS is May 22 in Toledo and Jerry Pickering spoke with Fred about his fund-raising efforts.

It's going to be another packed week filled with activities throughout this community. Three car shows, a resident St. Patrick's Day Parade, and a Learn and Grow Expo are coming your way. Spring Polo is back and The Villages Golf Festival is too. You can support Walk MS 2022 as well as local artists at a few showcases and sales. There are lots of great entertainment options on the calendar this week. And Villages News Network Executive Producer Jill Winters goes one-on-one with Villages bowler Missy Klug to hear about her recent success on the lanes as she prepares for the final rounds of The Properties of The Villages Real Results Tournament. 

This week I welcome Realtor Sonseeahray (Sonni) Harvin  into the studio.Sonni was born and raised on Detroit's west side. She is an alumna of both Renaissance High and Emory University where she received both her undergraduate and graduate degree. Currently, Sonni lives with her three children (2 in college and 1 in middle school) in Oakland County, MI. In this candid conversation, Sonni shares that after her multiple sclerosis diagnosis in 2010, she  began to see the necessity of community. After living most of her young adult years in survival mold focused on rearing her children and finding her occupational footing, Sonni learned through her diagnosis that without having a  community to hold her up, she was not going to be able to maintain the life she had worked so hard to build for her family. So...setting aside the myth of Superwoman, Sonni rolled up her sleeves, committing herself to structuring her life so that her health and the care of her children became center. From that basis she then restructured her view of what community should be. Whew! To learn more about multiple sclerosis and how you can advance treatment and services for individuals navigating this illness please check out National Multiple Sclerosis Society or Walk MS.Follow Sonni on social media @Sonni Sells - The Real Estate SpecialistSonni@YourServiceAnd her website: https://sonnirealestate.com

Morgan Music is a teacher, a support group leader, & so much more. She allows herself to be vulnerable with us and share some difficult things she dealt with as a result of her multiple sclerosis. She has raised over ten thousand dollars for the MS Society. Join me as I chat is up with Morgan Music. www.thrivingoversurvivingpodcast.com Instagram: @thrivingoversurvivingpodcast

Morgan Music is a teacher, a support group leader, & so much more. She allows herself to be vulnerable with us and share some difficult things she dealt with as a result of her multiple sclerosis. She has raised over ten thousand dollars for the MS Society. Join me as I chat is up with Morgan Music. www.thrivingoversurvivingpodcast.com Instagram: @thrivingoversurvivingpodcast

Multiple Sclerosis News Today's columnist, Jenn Powell, discusses how Walk MS Fundraising will be a ‘virtual experience' in 2021. Multiple Sclerosis News Today's multimedia associate, Price Wooldridge, reads the column by Ed Tobias, MS Wire, “Don't Let MS Stop You From Grandparenting”. ===================================== Treatment for Relapsing MS Progression | MAYZENT® (siponimod) Read about MAYZENT, a once daily pill that can significantly slow down disability progression in people with relapsing MS. See full prescribing & safety info. https://www.mayzent.com/?utm_source=changeinrms&utm_medium=vanityurl&utm_campaign=novartis_mayzent_2020&utm_content=soundcloud ===================================== Are you interested in learning more about multiple sclerosis? If so, please visit: https://multiplesclerosisnewstoday.com/ ===================================== To join in on conversations regarding multiple sclerosis, please visit: https://multiplesclerosisnewstoday.com/forums/

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Every year I say I'm done with fundraising for the National Multiple Sclerosis Society yet here I am again. I signed up to be captain of a small but mighty WALK MS team and since there's no actual WALK event this year due to Covid, I've been forced to be more creative than ever in my fundraising efforts. Asking people for money in this climate is very stressful making me feel more vulnerable than ever because I HATE asking for anything but I guess I HATE this disease more so as long as I'm still able I will do my part to continue the funding so necessary to finding a CURE for this disease once and for all. --- Send in a voice message: https://podcasters.spotify.com/pod/show/kimberly-albin/message

It's MS Awareness Week and we're talking with two remarkable women, Sarah Quezada and Tracey Cooper-Harris, who are living their lives out loud, refusing to let MS define them.  We're also inviting you to participate in the first-ever RealTalk MS Listener Survey (and be entered into a drawing for a $100 Amazon Gift Card!). We'll share research announced at the recent ACTRIMS Forum that explores whether we may be headed toward Cognitive-Dominant MS. We're also talking about how the National MS Society is teaming up with the Lupus Research Alliance and the Juvenile Diabetes Research Foundation to focus research on autoimmune disease. And we'll tell you about a study that examined factors other than physical disability that impact the quality of life for people living with MS. We have a lot to talk about! Are you ready for RealTalk MS??! MS Awareness Week and the power of sharing our stories  :21 Take our RealTalk MS Listener Survey and you could win a $100 Amazon Gift Card  3:51 MS Society's COVID-19 Vaccine Guidance Group is reviewing the data from the Johnson & Johnson vaccine clinical trial   5:09 Are we headed for Cognitive-Dominant MS?  5:56 National MS Society is teaming up with the Lupus Research Alliance and the JDRF to fund autoimmune research   7:53 The impact of fatigue on quality of life  9:18 My interview with Sarah Quezada and Tracey Cooper-Harris  13:25 Share this episode  39:52 Take the RealTalk MS Listener Survey  40:12 WalkMS 2021 is here!  40:39 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email:  https://realtalkms.com/184 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.comPhone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com RealTalk MS Listener Survey (You'll be entered to win a $100 Amazon Gift Card!) RealTalk MS ACTRIMS Forum Bonus Episode National MS Society COVID-19 Vaccine Guidance for People Living with MS National MS Society: Timing MS Medications with COVID-19 mRNA Vaccines STUDY: Cerebral/Cognitive-Predominant MS Decoding Immune-Mediated Diseases   STUDY: Quality of Life in Multiple Sclerosis: The Differential Impact of Motor and Cognitive Fatigue WalkMS 2021 Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating and Review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 184 Guests: Sarah Quezada and Tracey Cooper-Harris Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

In 2019, after a year of life changing events; pregnancy loss, family loss, and a major job change, Rachel began experiencing numb/tingly hands and feet, vision loss (diagnosed as Optic Neuritis), and extreme brain fog and fatigue. Two months later, after many tests Rachel was diagnosed at 29 years old with Relapsing Remitting Multiple Sclerosis (RRMS). Now a year and a half later, Rachel is taking more control of her diagnosis and overall health and well-being living with MS. Through the support of her family, friends, community, and fellow warriors she has gained new perspectives on life with MS. She has become an activist for MS and Chronic Disease Awareness, championing her own team for Walk MS for the last two years. Rachel loves connecting with others and building a network of support – connect with her on social media! @ms__rach (Instagram) https://www.facebook.com/rachel.gaffron.9

Last Saturday I got to sit down with Missouri comedian Josh Lynch, and it was a blast. He is throwing 3 shows this month to create donations for the National MS Society and Walk MS. Marchis MS awareness month, and since Josh has it, I'm pretty sure he knows what he's talking about. You don't have to be in Missouri to watch as they will be aired live on Zoom. So make sure you give josh a follow and help out his shows, and enjoy! Josh's Facebook March 7th Show March 13th Show March 20th Show Story time With Lynch Home of the Rhino S.J. Network Audible Trial --- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app --- Send in a voice message: https://anchor.fm/adventuresofalbinorhino/message Support this podcast: https://anchor.fm/adventuresofalbinorhino/support

When it comes to accessing care and even the disease course itself, MS is not an equal-opportunity disease. We're talking with Dr. Mitzi Joi Williams about the disparities that affect members of minority populations who are living with MS.     Dr. Williams is a Board-Certified Neurologist and Multiple Sclerosis Specialist who is passionate about educating and empowering people affected by MS to understand the disease process and the goals of treatment.  And Dr. Williams is an expert in understanding MS in underserved and minority populations. We're also inviting you to participate in the first-ever RealTalk MS Listener Survey (and be entered into a drawing for a $100 Amazon Gift Card!). We'll tell you about a call by the International Progressive MS Alliance to improve clinical trials. We'll share research announced at last week's ACTRIMS Forum that suggests there is an alarming amount of opioid use among people living with MS. We're also talking about a newly launched digital music therapy program that you can access from home. And we're sharing this month's CAN-DO MS programs that are all focused on building resilience. We have a lot to talk about! Are you ready for RealTalk MS??! Don't miss the ACTRIMS bonus episode! :22 Take our RealTalk MS Listener Survey and you could win a $100 Amazon Gift Card  1:17 International Progressive MS Alliance calls for changes in clinical trials   3:23 Opioid use among people living with MS  6:27 Digital music therapy for people living with MS  8:48 CAN-DO MS programs are focusing on resilience in March  10:23 My interview with Dr. Mitzi Joi Williams  12:02 Share this episode  29:50 Take the RealTalk MS Listener Survey  30:12 WalkMS 2021 is here!  30:37 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email:  https://realtalkms.com/183 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.comPhone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com RealTalk MS Listener Survey (You'll be entered to win a $100 Amazon Gift Card!) RealTalk MS ACTRIMS Forum Bonus Episode National MS Society COVID-19 Vaccine Guidance for People Living with MS National MS Society: Timing MS Medications with COVID-19 mRNA Vaccines Facing the Urgency of Therapies for Progressive MS -- A Progressive MS Alliance Proposal   STUDY: One in Five (20%) People with Multiple Sclerosis Use Prescription Opioids   MS in Harmony   CAN-DO MS program info & registration WalkMS 2021 Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating and Review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 183 Guests: Dr. Mitzi Joi Williams Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

If you spend more than a minute on social media it can seem like there's more misinformation about the COVID-19 vaccines than there is legitimate, fact-based information.  And I've heard it said that if you repeat a lie enough, it becomes the truth. So we're doing some major COVID-19 vaccine myth-busting with Dr. Scott Newsome.     Dr. Newsome is an Associate Professor of Neurology and Director of Neurosciences Consultation and Infusion Center at Johns Hopkins Medicine. He also serves as the Co-Director of the Multiple Sclerosis Experimental Therapeutics Program at Johns Hopkins, and President of the Board of Governors of the Consortium of MS Centers. Dr. Newsome is also a member of the expert Task Force convened by the National MS Society to develop a COVID-19 vaccine guidance for people living with MS.   We're also inviting you to participate in the RealTalk MS Listener Survey (and be entered into a drawing for a $100 Amazon Gift Card!).   And we're giving you a heads-up to watch for a bonus episode of RealTalk MS later this week when we cover the ACTRIMS FORUM 2021.   We have a lot to talk about! Are you ready for RealTalk MS??! The RealTalk MS Listener Survey :22 Why we have to talk about the COVID-19 Vaccine Again!  1:07 Bonus Episode coming later this week -- ACTRIMS 2021  3:21 Dr. Scott Newsome debunks myths & rumors about the COVID-19 vaccines  4:05 Share this episode  32:25 Take the RealTalk MS Listener Survey  32:45 WalkMS 2021 is here!  33:12 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email:  https://realtalkms.com/182 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.comPhone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com RealTalk MS Listener Survey (You'll be entered to win a $100 Amazon Gift Card!) Give RealTalk MS a Rating and Review National MS Society COVID-19 Vaccine Guidance for People Living with MS National MS Society: Timing MS Medications with COVID-19 mRNA Vaccines WalkMS 2021 Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating and Review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 182 Guests: Dr. Scott Newsome Tags: MS, MultipleSclerosis, MSResearch, MSSociety, COVID19, RealTalkMS Privacy Policy

A fulfilling sexual relationship with your partner can have a positive impact on your physical and mental health in a variety of ways. But studies suggest that about 80% of the people living with MS are affected by some kind of sexual dysfunction. We're devoting this entire episode of RealTalk MS to talking about sex and MS with my guest, Dr. Linda Mona.     Dr. Mona is a licensed clinical psychologist and founder of Inclusivity Clinical Consulting Services.  She's been recognized by the American Psychological Association, the Academy of Spinal Cord Injury Professions, Paralyzed Veterans of America, and the Society for the Scientific Study of Sexuality for her work focusing on people living with disabilities.   We have a lot to talk about! Are you ready for RealTalk MS??! Sex and MS with Dr. Linda Mona :18 Share this episode  28:42 Leave a rating and review for RealTalk MS  29:03 WalkMS 2021 is here!  30:14 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email:  https://realtalkms.com/181 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.comPhone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Give RealTalk MS a Rating and Review National MS Society COVID-19 Vaccine Guidance for People Living with MS National MS Society: Timing MS Medications with COVID-19 mRNA Vaccines WalkMS 2021 Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating and Review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 181 Guests: Dr. Linda Mona Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

The National MS Society has updated their COVID-19 vaccine guidance for people living with MS, providing detailed recommendations for timing your disease-modifying therapy with the two COVID-19 vaccines that are approved in the U.S. If you're on a disease-modifying therapy and you've been wondering about your DMT and the COVID-19 vaccines, this episode is for you.     My guest this week is Dr. Jaime Imitola, the Director of the Division of Multiple Sclerosis and Translational Neuroimmunology at UConn Health, a noted expert in his field, and a member of the task force that the MS Society convened to create the COVID-19 vaccine guidance. We're talking about the new updates to the vaccine guidance,  answering some of the questions that you've sent my way, and we'll get into how this task force went about creating this very important guidance for people living with MS. We're also talking about the FDA approval of intramuscular injections for Plegridy (and how that came about!) We'll tell you about BRAINTEASER, a European Union initiative that will leverage artificial intelligence in an effort to treat people living with ALS and MS by providing predictive care instead of reactive care. And we'll explain how the newly announced Gladstone-UCSF Center for Neurovascular Brain Immunology is opening a new front in the war on MS.   We have a lot to talk about! Are you ready for RealTalk MS??! Facts are facts! :22 National MS Society issues guidance for timing MS medications and COVID-19 mRNA vaccines 4:35 The latest reason to download the RealTalk MS app  5:26 FDA approves Intramuscular injection for Plegridy  6:15 BRAINTEASER launches  7:24 The Gladstone-UCSF Center for Neurovascular Brain Immunology  9:55 My interview with Dr. Jaime Imitola  12:26 Share this episode  28:12 WalkMS 2021 is here!  28:32 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email:  https://realtalkms.com/180 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.comPhone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Give RealTalk MS a Rating and Review National MS Society COVID-19 Vaccine Guidance for People Living with MS National MS Society: Timing MS Medications with COVID-19 mRNA Vaccines WalkMS 2021   Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating and Review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 180 Guests: Dr. Jaime Imitola Tags: MS, MultipleSclerosis, MSResearch, MSSociety, COVID19, RealTalkMS Privacy Policy

Research has shown that, for people living with MS, regular exercise and physical activity can improve their quality of life while helping to manage MS symptoms.   But research has also shown that people living with MS tend to be less active than people in the general population. In response, the National MS Society convened a group of experts to develop fact-based guidance for promoting exercise and lifestyle physical activity for all people with MS, regardless of their ability level.   Joining me to talk about these exercise recommendations along with some of the real benefits that exercise produces for people living with MS is Dr. Nora Fritz, a board-certified Neurologic Physical Therapist and an Assistant Professor in the Physical Therapy Program in the Department of Health Care Sciences and Department of Neurology at Wayne State University School of Medicine, where she’s also the Director of the Neuroimaging and Neurorehabilitation Laboratory.    Judy Boon was diagnosed with MS in 2007. Judy is a true MS Warrior who has fully integrated fitness activities and exercise into her everyday lifestyle. Judy is also joining me to talk about how exercise has impacted her MS journey. We're also talking about a University of Washington study that measured the willingness to receive a COVID-19 vaccine among people living with MS.    We'll tell you about a study from Italy that measured the long-term benefits of autologous hematopoietic stem cell transplantation (aHSCT).   And we're talking about an important survey that measured the perspectives and preferences regarding MS research among racial and ethnic groups.    We have a lot to talk about! Are you ready for RealTalk MS??! Study measures COVID-19 vaccine willingness among people living with MS  2:23 Study shows long-term benefits of analogous Hematopoietic Stem Cell Transplantation  6:32 Study measures perspectives and preferences for MS research among racial and ethnic groups  9:15 Study shows a cancer treatment may protect the blood-brain barrier and reduce neuroinflammation  9:05 My interview with Dr. Nora Fritz  12:45 My interview with Judy Boone  25:14 Share this episode  34:47 Walk MS 2021 is coming!  35:07 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/179 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.comPhone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Give RealTalk MS a Rating and Review National MS Society COVID-19 Vaccine Guidance for People Living with MS What You Need to Know About Coronavirus (COVID-19) RealTalk MS Episode 177: Dr. Nancy Sicotte Answers Your Questions about the COVID-19 Vaccine and MS STUDY: Willingness to Obtain COVID-19 Vaccination in Adults with Multiple Sclerosis in the United States STUDY: Long-Term Clinical Outcomes of Hematopoietic Stem Cell Transplantation in Multiple Sclerosis Autologous Hematopoietic Stem Cell Transplant in Multiple Sclerosis: Recommendations of the National Multiple Sclerosis Society STUDY: Perceptions and Preferences Regarding Multiple Sclerosis Research Among Racial and Ethnic Groups iConquerMS Walk MS 2021 National MS Society COVID-19 Response Fund Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating and Review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 179 Guests: Dr. Nora Fritz and Judy Boone Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

A writer and self-described "lover of all things artsy," Thomasena is a social work administrator, MS and Breast Cancer Awareness advocate, and proud pet parent. She created the website www.musicmoviesthoughts.com to express her ideas on the art forms she loves, spark interest in the new--and new interest in the old--music and movies she most enjoys. Twitter and Instagram: @musicfilmdiva You can follow her website, its Facebook page MusicMoviesThoughts (@MMThoughts) and its partner YouTube channel, https://www.youtube.com/channel/UCb9zbL3MaWR5vwYIV1WZ_QA?view_as=subscriber. You can also follow her 2020 Walk MS campaign and donate here: http://main.nationalmssociety.org/goto/walkinbyfaithteamcaptain

A writer and self-described "lover of all things artsy," Thomasena is a social work administrator, MS and Breast Cancer Awareness advocate, and proud pet parent. She created the website www.musicmoviesthoughts.com to express her ideas on the art forms she loves, spark interest in the new--and new interest in the old--music and movies she most enjoys. Twitter and Instagram: @musicfilmdiva You can follow her website, its Facebook page MusicMoviesThoughts (@MMThoughts) and its partner YouTube channel, https://www.youtube.com/channel/UCb9zbL3MaWR5vwYIV1WZ_QA?view_as=subscriber. You can also follow her 2020 Walk MS campaign and donate here: http://main.nationalmssociety.org/goto/walkinbyfaithteamcaptain

A writer and self-described "lover of all things artsy," Thomasena is a social work administrator, MS and Breast Cancer Awareness advocate, and proud pet parent. She created the website www.musicmoviesthoughts.com to express her ideas on the art forms she loves, spark interest in the new--and new interest in the old--music and movies she most enjoys. Twitter and Instagram: @musicfilmdiva You can follow her website, its Facebook page MusicMoviesThoughts (@MMThoughts) and its partner YouTube channel, https://www.youtube.com/channel/UCb9zbL3MaWR5vwYIV1WZ_QA?view_as=subscriber. You can also follow her 2020 Walk MS campaign and donate here: http://main.nationalmssociety.org/goto/walkinbyfaithteamcaptain

This week, we're going to hear from 3 experts on very different aspects of COVID-19 and MS. Kathy Costello, the Associate Vice-President of Healthcare Access for the National Multiple Sclerosis Society is going to give us our weekly update on COVID-19 and MS. Mandy Rohrig, a physical therapist who specializes in the rehabilitation of people with Multiple Sclerosis and Parkinson’s disease. is going to talk to us about exercises that you can do at home to stay healthy. And then you'll meet Nancy Guerrera. Nancy is a registered nurse who was diagnosed with MS in 2007. And last month, Nancy was diagnosed with COVID-19. We'll hear exactly what it's been like for someone living with MS to contract COVID-19 after being on Ocrevus for the past 3 years. We have a lot to talk about! Are you ready for RealTalk MS??! A Social Media Post That Got It Wrong  :22 COVID-19 & MS Update with Kathy Costello  4:52 Exercising at Home to Stay Healthy with Mandy Rohrig    14:12 Living with MS & Diagnosed with COVID-19: My Interview with Nancy Guerrera  23:32 Share this episode  38:09 Donate to Walk-MS  38:39 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/139 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us on the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Give RealTalk MS a Rating & Review National MS Society's Ask An MS Expert Video Replay What You Need to Know About Coronavirus (COVID-19) Join the RealTalk MS Facebook Group Jon's WALK-MS Fundraising Page Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating & Review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 139 Hosted By: Jon Strum Guests: Kathy Costello, Mandy Rohrig, and Nancy Guerrera Tags: MS, MultipleSclerosis, MSResearch, MSActivist, MSSociety, Ocrevus, Coronavirus, COVID19, RealTalkMS Privacy Policy

Happy Monday everyone! I hope the weekend was a good one for you.Of course on this week's episode we talk about how almost every day blends together!We also talk about sports, WalkMS, and we bring up something that caught my attention regarding almost all sitcoms.If you've got an answer for why it happens, please chime in and let me know.

This week, and for the foreseeable future, we're committed to sharing the most updated and reliable information on COVID-19 and MS. Returning as my guest on the podcast is Dr. Mitzi Joi Williams. Dr. Williams is a Board-Certified Neurologist and Fellowship trained Multiple Sclerosis Specialist who is passionate about educating and empowering people affected by MS to understand the disease process and the goals of treatment. She is a sought-after consultant, speaker, researcher, and author with expertise in understanding MS in underserved and ethnic minority populations. Dr. Williams is giving us our weekly update on what we're learning about COVID-19 & MS. We're talking about COVID-19 and starting, stopping, or pausing disease-modifying therapies. And we're taking a closer at how COVID-19 is impacting minority populations and how MS itself impacts minority populations differently. We'll tell you everything you need to know about COVID-19 tests, COVID-19 antibody tests, and those shady COVID-19 at-home test kits. We'll also tell you about how some MS clinical trials are being paused, and what that means when it comes to the availability of new disease-modifying therapies. And we'll tell you about a study that shows that ethnicity is not a factor in predicting cognitive impairment in early MS. But the study may have inadvertently highlighted an unfortunate reality in our society. We have a lot to talk about! Are you ready for RealTalk MS??! The Best Email Ever  :35 Everything You Need to Know About COVID-19 Tests  3:36 Atara Biotherapeutics Pauses ATA 188 Clinical Trial for PPMS and SPMS    8:34 Study Shows Cognitive Impairment in Early MS Not Linked to Ethnicity  11:22 My Interview with Dr. Mitzi Joi Williams  15:50 Share this episode  31:11 Donate to Walk-MS  21:43 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/138 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us on the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Give RealTalk MS a Rating & Review National MS Society's Ask An MS Expert Video Replay What You Need to Know About Coronavirus (COVID-19) Race, Ethnicity, and Cognition in Persons Newly Diagnosed with Multiple Sclerosis The RealTalk MS Facebook Group Jon's WALK-MS Fundraising Page Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating & Review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 138 Hosted By: Jon Strum Guests: Dr. Mitzi Joi Williams Tags: MS, MultipleSclerosis, MSResearch, MSActivist, MSSociety, Ocrevus, Coronavirus, COVID19, RealTalkMS Privacy Policy

This week, and for the foreseeable future, we're committed to sharing the most updated and reliable information on COVID-19 and MS. Joining me as my guest is Dr. Tanuja Chitnis, a board-certified neurologist specializing in multiple sclerosis, with a dual appointment at the Brigham and Women’s Hospital and Massachusetts General Hospital in Boston. Dr. Chitnis is a Professor of Neurology at Harvard Medical School and a Senior Scientist at the Ann Romney Center for Neurologic Diseases at Brigham & Women’s Hospital, where Dr. Chitnis created the Translational Neuroimmunology Research Center, which is focused on bringing bench discoveries to clinical trials for multiple sclerosis and related diseases. Dr. Chitnis serves on the advisory boards and steering committees of several MS-related organizations, including the National MS Society’s Medical Advisory Committee, and she’s written more than 200 publications and reviews related to multiple sclerosis. We're discussing who, among everyone living with MS, is immunocompromised and who isn't -- and why that matters when it comes to being susceptible to COVID-19. We're talking about whether pandemic-related stress can lead to an MS relapse. And we'll look at the outcomes of MS patients who have already contracted COVID-19. We'll remind you about the value of a fact, and why credible information from reliable sources is so critical right now. And we'll connect you to the video replay of last Friday's Ask An MS Expert webinar.  (I hope you already consider these weekly webinars with leading MS experts answering your questions to be "can't miss" viewing.) We'll also tell you about a new North American MS/COVID-19 patient registry for healthcare professionals that will help define best treatment strategies and best patient outcomes for people living with MS who contract COVID-19 in the future. And now that we all have a bit more time on our hands during the day, we have some suggestions for how you can constructively spend some of that time, including: Taking the University of Washington MS Rehabilitation & Wellness Research Center's online survey Taking the Massachusettes General Hospital online survey Getting involved in iConquer MS patient-powered research ...and, if you happen to be using an iPhone, even giving RealTalk MS a rating & review! We have a lot to talk about! Are you ready for RealTalk MS??! Check out Episode 4 of the National MS Society's Ask an MS Expert Webinar Series  :56 The Value of Facts in a Time of Uncertainty  2:36 UW MS Rehabilitation & Wellness Research Center COVID-19 Survey   4:54 iConquer MS COVID-19 Survey  5:35 National MS Society & Consortium of Multiple Sclerosis Centers Launch COViMS North American Registry  6:41 Have a Minute? Get In Touch!  8:36 My Interview with Dr. Tanuja Chitnis  11:03 Share this episode  20:14 Donate to Walk-MS  20:45 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/137 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us on the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Give RealTalk MS a Rating & Review National MS Society's Ask An MS Expert Video Replay What You Need to Know About Coronavirus (COVID-19) Federal Coronavirus Response and Economic Stimulus Information University of Washington COVID-19 Online Survey iConquer MS COVID-19 Online Survey The RealTalk MS Facebook Group Jon's WALK-MS Fundraising Page Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating & Review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 137 Hosted By: Jon Strum Guests: Dr. Tanuja Chitnis Tags: MS, MultipleSclerosis, MSResearch, MSActivist, MSSociety, Ocrevus, Coronavirus, COVID19, RealTalkMS Privacy Policy

For 2020, the annual WALK MS fundraisers on behalf of the National Multiple Sclerosis Society are going virtual! President of the Greater NYC/Long Island Chapter Dana Miele, and Philip Terra, living with MS and member of the Staten Island Planning Committee, explain why their fundraisers remain crucial, even in the midst of COVID-19. For more, visit WALKMS.org.

For 2020, the annual WALK MS fundraisers on behalf of the National Multiple Sclerosis Society are going virtual! President of the Greater NYC/Long Island Chapter Dana Miele, and Philip Terra, living with MS and member of the Staten Island Planning Committee, explain why their fundraisers remain crucial, even in the midst of COVID-19. For more, visit WALKMS.org.

For 2020, the annual WALK MS fundraisers on behalf of the National Multiple Sclerosis Society are going virtual! President of the Greater NYC/Long Island Chapter Dana Miele, and Philip Terra, living with MS and member of the Staten Island Planning Committee, explain why their fundraisers remain crucial, even in the midst of COVID-19. For more, visit WALKMS.org.

Walk MS Toledo will be a virtual walk this year due to the restrictions of the Covid 19 restrictions. You can still fund raise and donate if you'd like and Jerry Pickering has a team you can access called Short Circuit-Deb Pickering at WalkMS.org

This week, and for the foreseeable future, we're committed to sharing the most updated and reliable information on COVID-19 and MS. Joining me as my guest is Dr. Kevin Alschuler, a Rehabilitation Psychologist with appointments as an Associate Professor in the Department of Rehabilitation Medicine and Adjunct Associate Professor in the Department of Neurology at the University of Washington. Dr. Alschuler also serves as the Psychology Director for the UW Medicine Multiple Sclerosis Center. Dr. Alschuler works clinically with patients with Multiple Sclerosis and other chronic medical conditions. And his primary role is to help patients develop effective strategies for managing the physical and emotional symptoms that present with their medical condition. Dr. Alschuler is also an active researcher, and his primary areas of focus include chronic pain, adjustment to medical condition, and the multidisciplinary treatment of medical conditions, currently with an emphasis on multiple sclerosis.  We're talking with Dr. Alschuler about how people living with MS can build their personal resilience in the face of the COVID-19 pandemic. He'll share some specific steps that you can start taking today that will help reduce the stress that you're feeling and empower you to come through the other side of these uncertain times with inner strength and greater calm.   We'll connect you to the video replay of last Friday's Ask An MS Expert webinar. I hope you consider these weekly webinars with leading MS experts answering your questions to be "can't miss" viewing. We're also talking about the new RealTalk MS Facebook group. We'll tell you which states have re-opened enrollment for health insurance under the Affordable Care Act. And you'll find out how and where to apply online for the MS Foundation's Emergency Assistance Grants.  You'll learn about the new MS disease-modifying therapy that the FDA approved last week -- but it won't be available for quite a while (we'll tell you why). We'll share some new online resources, including online information and support resources for MS caregivers. And speaking of MS caregivers, we'll tell you about an online survey for MS caregivers that we hope you (or a family caregiver) will take. We have a lot to talk about! Are you ready for RealTalk MS??! ___________   Check out Episode 2 of the National MS Society's Ask an MS Expert Webinar Series  :36   Announcing the RealTalk MS Facebook Group!  4:50   How about a quick favor?   5:26 Several states re-open Affordable Care Act enrollment  6:12 The MS Foundation offers Emergency Assistance Grants  7:43 FDA Approves Zeposia  8:49 HealthCentral launches its new Multiple Sclerosis Hub   10:21 COVID-19 Online Resources for MS Caregivers  10:48 Please take this online survey for MS Caregivers  11:14 My Interview with Dr. Kevin Alschuler  13:17 Share this Episode  28:41 Reminder...Please Donate to Walk-MS  29:14 ___________ SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/135 ___________ ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.comPhone: (310) 526-2283 ___________ LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society's Ask An MS Expert Video Replay What You Need to Know About Coronavirus (COVID-19) The RealTalk MS Continuing the Conversation Facebook Group Give RealTalk MS a Rating & Review   MS Foundation Emergency Assistance Grant Application HealthCentral's Multiple Sclerosis Hub COVID-19 Resources for Caregivers Accelerated Cure Project MS Caregiver Survey Jon's WALK-MS Fundraising Page Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating & Review ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 135 Hosted By: Jon Strum Guests: Dr. Kevin Altschuler Tags: MS, MultipleSclerosis, MSResearch, MSActivist, MSSociety, Coronavirus, COVID19, RealTalkMS Privacy Policy

This week, and for the foreseeable future, we're committed to sharing the most updated reliable information on COVID-19 and MS. Joining me as my guest is Dr. Aaron Miller. Dr. Miller is the Chair of the Society’s National Medical Advisory Committee and is also the Medical Director of the Corinne Goldsmith Dickinson Center for Multiple Sclerosis and a Professor of Neurology at the Icahn School of Medicine at Mount Sinai.  He also serves as Vice-Chair for Education in the Department of Neurology.  Dr. Miller was the first Chairman of the multiple sclerosis section of the American Academy of Neurology and he's participated in numerous clinical trials of new MS treatments.  We're talking with Dr. Miller about the National MS Society's guidance for MS disease-modifying therapies and the coronavirus (COVID-19), whether you should hold off starting a new disease-modifying therapy, whether you have to take additional precautions surrounding the other medications you might be using to manage MS symptoms, whether COVID-19 can cause an MS relapse, and more.     We're also talking about the MS Society's new Ask An MS Expert webinar series that we're hosting. We'll tell you about the Families First Coronavirus Response Act that was signed into law last week, and how it might affect you and your family. We're sharing news about a study that shows that women require fewer MS-related hospitalizations as they age. We'll tell you how virtual reality can reduce the risk of falls by predicting balance issues among people with MS before they, themselves, become aware that they might have balance issues. And Janssen, a division of Johnson & Johnson, has applied for FDA approval of a disease-modifying therapy for relapsing forms of MS. We have a lot to talk about! Are you ready for RealTalk MS??! ___________   Welcome to the New Normal  :18   Introducing the National MS Society's Ask an MS Expert Webinar Series  :32   Make sure you're getting your COVID-19 info from credible sources   3:47 COVID-19 on the National MS Society's Website  4:58 The Families First Coronavirus Response Act Signed Into Law  5:47 Study Finds Fewer MS-Related Hospitalizations As Women Age  7:46 Study Uses Virtual Reality To Detect Balance Issues In MS   10:59 Janssen Submits Application for FDA Approval of Ponesimod  13:47 My Interview with Dr. Aaron Miller  14:51 Share this Episode  24:32 Reminder...Please Donate to Walk-MS  25:05 ___________ SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/134 ___________ ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.comPhone: (310) 526-2283 ___________ LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society's Ask an MS Expert Webinar: What You Need to Know About MS & COVID-19 with Dr. Aaron Miller and Kathy Costello What You Need to Know About Coronavirus (COVID-19) MS Disease-Modifying Treatment Guidelines for Coronavirus (COVID-19) Predictors of Hospitalization in a Canadian MS Population: A Matched Cohort Study Can Optical Flow Perturbations Detect Walking Balance Impairment in People with Multiple Sclerosis? Jon's WALK-MS Fundraising Page Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating & Review ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 134 Hosted By: Jon Strum Guests: Dr. Aaron Miller Tags: MS, MultipleSclerosis, MSResearch, MSActivist, MSSociety, Coronavirus, COVID19, RealTalkMS Privacy Policy

The National MS Society's National Medical Advisory Committee has issued its recommendations for MS disease-modifying therapies and the coronavirus (COVID-19), and we're sharing them in this episode. You'll also hear about a new disease-modifying therapy that's about to receive FDA approval. We'll tell you about a clinical trial for a potential disease-modifying therapy for progressive MS that fell short of achieving its goals. And you'll hear about study results that indicate there are still a lot of people living with MS who aren't acting in their own best interest.   My guest this week is Dawnia Baynes. Besides being an MS Activist, Dawnia facilitates a very special MS support group, and last month, the Southern-California Nevada Chapter of the National MS Society named Dawnia their Inspirational Person of the Year. We have a lot to talk about! Are you ready for RealTalk MS??! ___________   Make sure you're getting your COVID-19 info from credible sources   :39 The Coronavirus (COVID-19) and MS Disease-Modifying Therapies  2:41 Ozanimod scheduled for FDA Approval this Month  2:09 High-Dose Biotin For Progressive MS Fails to Improve Disability  7:41 Disease-Modifying Therapy Non-Compliance Among People Living with MS  9:07 My Interview with Dawnia Baynes  12:05 Share this Episode  24:26 Reminder...Please Donate to Walk-MS  24:46 ___________ SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/133 ___________ ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.comPhone: (310) 526-2283 ___________ LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com What You Need to Know About Coronavirus (COVID-19) MS Disease-Modifying Treatment Guidelines for Coronavirus (COVID-19) Non-Compliance With Disease-Modifying Therapies in Patients With Multiple Sclerosis: A Qualitative Analysis Support Group for Teens Living with MS  Jon's WALK-MS Fundraising Page Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating & Review ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 133 Hosted By: Jon Strum Guests: Dawnia Baynes Tags: MS, MultipleSclerosis, MSResearch, MSActivist, MSSociety, Coronavirus, COVID-19, RealTalkMS Privacy Policy

Welcome to this MS Awareness Week bonus episode of RealTalk MS. In this special episode, I'm talking with Damian Washington. Damian is an actor and a prolific vlogger. He was diagnosed with MS in 2016, and when you watch one of Damian's videos, it's impossible not to be hooked by his infectious personality.     I'm also talking with Dan and Jennifer Digmann. Jennifer was diagnosed with progressive MS in 1997, and Jennifer's husband Dan was diagnosed with relapsing-remitting MS in 2000. Dan & Jennifer met at a National MS Society event in 2002, and they were married in 2005. Together, they're taking on MS as a couple.   We have a lot to talk about! Are you ready for RealTalk MS??! ___________   It's MS Awareness Week!   :18 My Interview with Damian Washington  2:01 My Interview with Dan & Jennifer Digmann  14:26 Share This Episode  28:53 Reminder...Please Donate to Walk MS  29:21 ___________ SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/msawareness ___________ ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.comPhone: (310) 526-2283 ___________ LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Damian Washington's Vlog Dan & Jen Digmann: A Couple Takes on MS Jon's WALK MS Fundraising Page Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating & Review ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Bonus Episode: MS Awareness Week Hosted By: Jon Strum Guests: Damian Washington, Dan & Jennifer Digmann Tags: MS, MultipleSclerosis, MSResearch, COVID19, MSSociety, RealTalkMS Privacy Policy

It's hard to talk to anyone about anything without talking about the coronavirus. And because the CDC has announced that people with weakened immune systems may be particularly vulnerable to this virus, people affected by MS can feel as though they have even more reason to worry. My guest is clinical psychologist Dr. Abbey Hughes and we're talking about how people affected by MS should be thinking about the coronavirus, and what they should and shouldn't be doing about it.    You'll also hear about a newly approved MS disease-modifying therapy and another MS disease-modifying therapy that's just been submitted for approval. We'll tell you how the Affordable Care Act wound its way to the Supreme Court, and we'll look at what's at stake for people affected by MS or any other chronic illness. We have a lot to talk about! Are you ready for RealTalk MS??! ___________   Look For the MS Awareness Week Bonus Episode on Thursday   :21 I'm Back from the National MS Society Public Policy Conference  :45 I Think I Might Owe You an Explanation  2:09 Canada Approves Mayzent for Treating Active Secondary Progressive MS  5:58 Janssen Submits Application to EMA for Approval of Ponesimod  6:36 How the Affordable Care Act Wound Up in the U.S. Supreme Court  7:40 My Interview with Dr. Abbey Hughes  12:36 The Things You Need to Know About the Coronavirus  30:22 Share this Episode  33:07 Reminder...Please Donate to Walk-MS  33:29 ___________ SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/132 ___________ ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.comPhone: (310) 526-2283 ___________ LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com What You Need to Know About Coronavirus (COVID-19) Jon's WALK-MS Fundraising Page Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating & Review ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 132 Hosted By: Jon Strum Guests: Dr. Abbey Hughes Tags: MS, MultipleSclerosis, MSResearch, MSActivist, MSSociety, Coronavirus, COVID-19, RealTalkMS Privacy Policy

Been a big fan of this woman's talent for years, but the person behind the voice is even more incredible. Lightning fans know of Sonya Bryson's incredible talent. Most know her military background. She is a retired Air Force Sergeant. But not all realize she battles Multiple Sclerosis. When you see her belt out the national anthem, she’s invincible. In this chat, we talk about the struggles she faces daily... even when she's on the ice singing for thousands at Amalie Arena. She also talks about a big walk coming up in Tampa this April.  It's your chance to get a great photo with Sonya and raise money to fight MS.  Be at Al Lopez Park at 8am on April 4, 2020.  If you can't make the walk, you can also support her by visiting: https://secure.nationalmssociety.org/site/TR?fr_id=31045&pg=personal&px=14506523 Plus, most importantly, the ladies on my Twitter asked that I get the scoop - where does Sonya get that Lightning blue lipstick?  She sort of gives an answer. 

My guest is Dr. Jackie Bhattarai and we're talking about her research exploring the disparities in MS-related depression and fatigue symptoms between African-Americans living with MS and Caucasians living with MS.    We're also talking about positive clinical trial results for a drug that slows disability progression in people living with primary progressive MS and non-active secondary progressive MS. And we'll tell you about the new MS drug from Novartis that's awaiting FDA and EMA approval.    You'll learn about a study that shows how high doses of Vitamin D increased inflammation and worsened disability in mice that had the "mouse version" of MS. And you'll hear about the insurance company in Utah that's saving money by flying people to Mexico to purchase their prescription medications (and they're even throwing in a $500 cash bonus for every trip you make!).   We have a lot to talk about! Are you ready for RealTalk MS??! ___________   Greetings from the MS Society's Public Policy Conference   :21 Where I'll Be This Month  1:02 Positive Clinical Trial Results Posted for Masitinib  4:18 Novartis Applies for FDA & EMA Approval for Ofatumumab  6:07 High Dosage of Vitamin D Worsens MS Disability in Mice  7:15 Insurer Saves Money by Flying People to Mexico for Their Prescription Medications  10:15 My Interview with Dr. Jackie Bhattarai  13:58 Share This Episode  25:57 Reminder...Please Donate to Walk MS  26:19 ___________ SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/131 ___________ ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.comPhone: (310) 526-2283 ___________ LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Positive Top-Line Phase 2B/3 Results for Masitinib in Progressive Forms of MS High Dose Vitamin D Worsens Experimental CNS Autoimmune Disease By Raising T Cell-Excitatory Calcium Jon's WALK MS Fundraising Page Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating & Review ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 131 Hosted By: Jon Strum Guests: Dr. Jackie Bhattarai Tags: MS, MultipleSclerosis, MSResearch, MSActivist, MSSociety, MSPPC20, RealTalkMS Privacy Policy

Welcome to this Bonus Episode of RealTalk MS, coming to you from the 2020 ACTRIMS Forum. ACTRIMS is an acronym for the Americas Committee for Treatment and Research in Multiple Sclerosis. And this year, 1200 MS research scientists and clinicians have come together to share the latest MS research news and insights.     We'll take you inside the proceedings at ACTRIMS and share the highlights of some of the most compelling presentations.   My first guest is the recipient of this year's Barancik Prize, Professor Francisco Quintana, and we're talking about Professor Quintana's innovative breakthrough research.   And my second guest, Clinical Specialist Micki Maes, will break down the details of a cutting edge application that uses artificial intelligence to read and analyze MRI scans.   We have a lot to talk about! Are you ready for RealTalk MS??! ___________   ACTRIMS 2020 Review   :18 My Interview with Professor Francisco Quintana  9:52 My Interview with Clinical Specialist Micki Maes  16:24 Share This Episode  22:08 Reminder...Please Donate to Walk MS  22:37 ___________ SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/ACTRIMS2020 ___________ ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.comPhone: (310) 526-2283 ___________ LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Jon's WALK MS Fundraising Page Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating & Review ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Bonus Episode: ACTRIMS 2020 Hosted By: Jon Strum Guests: Professor Francisco Quintana, Micki Maes Tags: MS, MultipleSclerosis, MSResearch, ACTRIMS, MSSociety, RealTalkMS Privacy Policy

Walk MS and Bike MS are on the calendar for this year with the Walk to be held May 12th and the Bike To The Bay June 20-21. Fred has all the details with Kelly Schneider in this interview.

We're just a week away from the National MS Society's Public Policy Conference in Washington, D.C. And my guest is Diane Kramer, an MS Activist from State College, Pennsylvania, who will be attending the Public Policy Conference for the first time.   Diane has experienced some of the same obstacles and frustrations that so many people living with MS experience -- insurance companies preventing her from getting the disease-modifying therapy that her neurologist prescribed, having the high cost of her MS medication force her to make nearly impossible financial choices, even skipping treatment. But whether she's knocking on the doors of neurologists' offices in her area so that she can connect them with resources from the MS Society, or starting an MS support group in her community when she found there wasn't one, Diane is a force to be reckoned with.    Jon also has some difficult news to share. And we'll tell you how you can support Jon in this year's Walk MS.   We have a lot to talk about! Are you ready for RealTalk MS??! ___________   Greetings from the ACTRIMS Forum   :22 Some Difficult News  :58 You Can Support Jon in WALK MS  2:36 My Interview with Diane Kramer  3:58 Share This Episode  26:37 Reminder...Please Donate to Walk MS  27:02 ___________ SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/130 ___________ ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.comPhone: (310) 526-2283 ___________ LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Jon's WALK MS Fundraising Page Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating & Review ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 130 Hosted By: Jon Strum Guests: Diane Kramer Tags: MS, MultipleSclerosis, MSResearch, MSActivist, MSSociety, MSPPC20, RealTalkMS Privacy Policy

In just two weeks, the National MS Society is hosting its annual Public Policy Conference in Washington, D.C. The centerpiece of that conference is our Day On The Hill when 300 MS Activists meet with our Congressional Representatives and Senators to discuss the legislative issues that are most important to people affected by MS. My guest is Bari Talente, the Executive Vice President of Advocacy for the National MS Society and we're talking all about this year's Public Policy Conference and the value and importance of advocacy.     We'll also let you know how and where to sign up for Discovering Life-Changing Treatments for Progressive MS, the global webcast from the International Progressive MS Alliance. (You have to hurry! It's happening in 2 days!)    You'll hear about an encouraging study of the effectiveness of stem cell therapy for some people living with secondary progressive MS.  We're also talking about why you might want to support Jon in this year's Walk MS. And you'll learn about a non-invasive breakthrough technology that provides a detailed assessment of the status of MS progression and the effectiveness of disease-modifying therapy...in 10 seconds.   We have a lot to talk about! Are you ready for RealTalk MS??! ___________   Sharing Some Crazy Statistics   :44 We're Just 2 Weeks Away From the Public Policy Conference  2:27 Register for the Global Webcast: Discovering Life-Changing Treatments for Progressive MS   3:39 You Can Support Jon in WALK MS  4:54 HSCT Shows Benefits in Some People with Secondary Progressive MS  6:23 New Eye-Tracking Tech Uses AI to Monitor MS  9:09 My Interview with Bari Talente  11:54 Share This Episode  26:03 Reminder...Please Donate to Walk MS  26:28 Download the RealTalk MS App  27:03 ___________ SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/129 ___________ ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.comPhone: (310) 526-2283 ___________ LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Jon's WALK MS Fundraising Page Register for the International Progressive MS Alliance Global Webcast: Discovering Life-Changing Treatments for Progressive MS Low-Intensity Lympho-Ablative Regimen Followed by Autologous Hematopoietic Stem Cell Transplantation in Severe Forms of Multiple Sclerosis: A MRI-Based Clinical Study BEAT-MS Clinical Trial C. Light Technologies Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating & Review ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 129 Hosted By: Jon Strum Guests: Bari Talente Tags: MS, MultipleSclerosis, MSResearch, MSActivist, MSSociety, RealTalkMS Privacy Policy

Sunday, May 19, 20191-mile and 3 -mile routes availableAge Minimum: Open to all agesStart/End LocationHuntington CenterStarting from:500 Jefferson Ave. Toledo, OH 43604ScheduleOnline registration will close at noon on the Thursday before Walk MS: Toledo. If you haven't signed up before then, please visit the registration area on event day to register.Registration time: 8:00 am | Walk starts: 9:30 am

Jerry Pickerings wife Deb Pickering came in to talk to us about the 2019 MS Walk and their team "Short Circuit" The type of MS that that Jerry has is Relapsing-remitting MSRelapsing-remitting MS is defined by inflammatory attacks on myelin (the layers of insulating membranes surrounding nerve fibers in the central nervous system (CNS)), as well as the nerve fibers themselves. During these inflammatory attacks, activated immune cells cause small, localized areas of damage which produce the symptoms of MS. Because the location of the damage is so variable, no two people have exactly the same symptoms.Sunday, May 19, 20191-mile and 3 -mile routes availableToledo, OhioAge Minimum: Open to all agesStart/End LocationHuntington CenterStarting from:500 Jefferson Ave. Toledo, OH 43604ScheduleOnline registration will close at noon on the Thursday before Walk MS: Toledo. If you haven't signed up before then, please visit the registration area on event day to register.Registration time: 8:00 am | Walk starts: 9:30 am

In this episode, I participate in Walk MS as a walker and also as the MC. Later, I post to Reddit and it goes pretty well, even though I use the wrong word.

This week we find out our inner ages and create some hilarious headlines! So grab a drink, give your cat some Prozac, snuggle up, and Friday with us!Find out your inner age: https://www.buzzfeed.com/katangus/quiz-alcohol-soul-ageDonate to Walk MS: http://main.nationalmssociety.org/goto/abagaillink

This week we find out our inner ages and create some hilarious headlines! So grab a drink, give your cat some Prozac, snuggle up, and Friday with us!Find out your inner age: https://www.buzzfeed.com/katangus/quiz-alcohol-soul-ageDonate to Walk MS: http://main.nationalmssociety.org/goto/abagaillink

Courtney Cleveringa joins Kim Chase to talk the walk, fundraising, advocacy and how to get what you need when dealing with the diagnosis of M.S.

I'm afraid to get a scooter because I fear my own disability, I get ready to emcee for Walk MS, and try to understand my place in society vis a vis Race, Gender, Class, and Ability.

Walk MS New York City on April 28th raises funds for people living with multiple sclerosis and for MS research. Natale Raimo, Director of Walk MS, explains how the walks help people in our community, and former dancer Michelle Tolson, tells the story of her surprise diagnosis and finding the right treatment for an unpredictable disease. For more details on Walk MS NYC and other area walks, visit WalkMS.org

Walk MS New York City on April 28th raises funds for people living with multiple sclerosis and for MS research. Natale Raimo, Director of Walk MS, explains how the walks help people in our community, and former dancer Michelle Tolson, tells the story of her surprise diagnosis and finding the right treatment for an unpredictable disease. For more details on Walk MS NYC and other area walks, visit WalkMS.org

Walk MS New York City on April 28th raises funds for people living with multiple sclerosis and for MS research. Natale Raimo, Director of Walk MS, explains how the walks help people in our community, and former dancer Michelle Tolson, tells the story of her surprise diagnosis and finding the right treatment for an unpredictable disease. For more details on Walk MS NYC and other area walks, visit WalkMS.org

Walk MS brings together passionate people who connect in communities nationwide and raise funds to change the world for everyone affected by multiple sclerosis.With nearly 300,000 people fundraising and volunteering each year, Walk MS has generated more than $1 billion toward our mission. Each step you take is backed by a supportive community. Together, we are stronger. Together, we will end MS forever.

Kim is the Vice President of Artist Relations for Mike Davis Productions. She's been managing Pantera for 24 years. She managed Pantera while they were an active, touring band and helped to market them as they transitioned into a legacy act. She has also managed Dimebag Darrell's Estate for the last 5 years. During her 9 years as a manager at Concrete Management, she worked with Pantera, White Zombie, Anthrax, Ministry, Prong, Down, Fear Factory, and more.  She has spent the last 18 years participating & fundraising for Walk MS. Her team has raised over $350,000. You can find her on Instagram @concretekz. Please Note: This episode was recorded on May 17th, before the tragic passing of Vinnie Paul on June 22. A New Level is heavily inspired by Pantera, and will also now be a tribute to the passion and spirit of Vinnie Paul. Kim, we are so sorry for your loss. Email Me: AskBlasko@Gmail.comFollow Me: @Blasko1313 on Twitter & Instagram Facebook: aNewLevelPodcast Please Rate and Review on Apple Podcasts or wherever you listen to this show! Thanks to Musicians Institute, Blake Bunzel, Monster Products and Jabberjaw Media for all your hard work. Thanks to all my guests and listeners for your support!  Learn more about your ad choices. Visit megaphone.fm/adchoices

Angela from Walk MS joins us to talk about MS Awareness Week (March 12-18th) and the upcoming walks including the San Francisco walk April 22nd.More info: https://secure.nationalmssociety.org/site/SPageServer/?pagename=WLK_HOM_all_events

This Week Lisa Lawrie (@JMOESandBFs) & Rafael Castaneda (@RMCGuitars)are Joined by Jennifer Wilker (@DulceCA17) and Toby Milton (@TMilt) to Discuss the @ARIYNBF Episodes~ "Harley Morenstein" & "Understudies,Talk Therapy, Eight Cans Of Spam" We Talk YouTube Boobs, Taste In Music & Alcohol, Rules Of Donating Shitty Food, Bad Carbs, Last Names, Uneccessary Endings, No Mo Mo Mo, aRT, Hobby Lobby Rage, Grocery Lines, RosenEats and Spam Heros! Also, Lots Of Shout Outs! iTunes Artwork by Ray Morgan (@RayMorganIII) Posted to iTunes by Jason Dix (@Woodloaf) Donate To Fellow BF Ashleys's Walk MS right NOW! https://t.co/6FVPZeWzLY @Oh_Ashually

My and my partner's photographic adventures in Grand Rapids volunteering with the National MS Society.

My fourth year as a volunteer photographer at the National MS Society's bike MS event hosted from Hope college in Holland.

This is the first official episode of MS in Michigan and the first volunteering for the National MS Society I worked in 2017.

This morning on the award-winning 'For the People' John Voket talks with the executive from the MS Society of CT about the latest research advancements toward finding a cure, and how you can participate in nearly a dozen WalkMS and BikeMS events across the state in the coming weeks. Then it's off to Bethel to visit Ability Beyond, whose innovative programs and best practices on supporting the physically and developmentally disabled are being adopted on a national level. And we'll check in with the commissioner of Connecticut's Dept. of Consumer Protection to hear about the latest conditions qualifying for the state's medical marijuana program.

March is Multiple Sclerosis awareness month. MS is an autoimmune disease in which the immune system eats away at the protective covering (Myelin Sheath) of the nerves throughout the Central Nervous System. Since the specific regions where the Myelin is damaged is random, symptoms experienced vary vastly. In this episode I speak with my fiancée Zoila, about her first hand experience of having MS. We cover her symptoms early on before she knew what was wrong, which ranged from extreme fatigue to limb numbness to losses of balance and bladder control issues. We spoke about the medications she has used; Glatiramer by injection (Copaxone) and Fingolimod (Gilenya). Millions of people around the world have been diagnosed with MS. Studies have shown anecdotal genetic links as well as environmental ones, but nothing concrete, hence it being dubbed the “mystery disease”. There is no known cause or cure. According to the Mayo Clinic, there are fewer than 200,000 U.S. cases per year. This is our attempt at spreading awareness. Thanks for checking it out.         Links referenced in this episode: What is Multiple Sclerosis video from ASAP Science: https://www.youtube.com/watch?v=Naecv3h868c To donate for MS research or partake in activities like Bike MS, Walk MS, or just to learn more, check out the National MS Society: http://www.nationalmssociety.org/ Fill out my 5-question survey if you’re passionate about your craft. I’ll share your insight and motivation on the Podcast: http://www.spuntoday.com/questionnaire/ Order prints of my Photography (Posters, Canvas, Framed):www.crated.com/spuntoday Shop on Amazon using this link, to support the Podcast: www.amazon.com Shop on iTunes using this link, to support the Podcast: https://itunes.apple.com/WebObjects/MZStore.woa/wa/viewTop?genreId=38&id=27820&popId=42&uo=10 Check out my Book: Make Way for You – Tips for getting out of your own way http://www.spuntoday.com/books/ (e-Book & Paperback are now available). Sound effects are credited to: http://www.freesfx.co.uk Listen on: iTunes, Stitcher, Pocket Casts and YouTube

The Patrol is in full effect! Join Brianne, Jason, Meghan, Ashley and Lisa for “Catch Up”, “All Things Alison”, “JMOE Jabber” AAANND… another Alison Quiz from Superfan Meghan with an AWESOME prize for the winner!! @JMOEPatrol @BSlamin @JmoesAndBobos @WoodLoaf @__Ashually @ZeneraPark BrianneSlamin.com Visit Ashley's Walk MS page to donate or spread the word: http://main.nationalmssociety.org/site/TR/Walk/TXHWalkEvents?px=7258330&pg=personal&fr_id=26247&_ga=1.179933351.287973726.1436879046

The whole gang is together for new exciting @ARIYNBF chatter! You'll get a health update from you favorite little Texan, Ashley, Lisa & Meghan talk smooshing pies in peoples faces, Lisa has a great idea for a new Podcast for #Al & Greg Heller called #ThePodCouple, Jason has a new pet, Vern and we discuss […]

Andrea has continued to hijack my podcast to ask me questions about finding inspiration, Staying Gold and the importance of talking to others.  And of course we cover Andrea's big passion, Walk MS!  

Andrea is the Manager of Walk MS for the Oregon Chapter of the MS Society.  She has so much energy that I wish I could bottle it and hand it out as a cure for MS fatigue.  She is also that person who stands out in a crowd because of her laughter.  Andrea doesn't have MS...she has a passion for helping people with MS.  She is also an extrovert and LOVES being around people, has a great perspective on how she relates to people with MS and passes on information about the MS Society that you may not know.  And oh yeah, she knows a lot about Walk MS and must have a budding desire to have her own podcast because she takes over and interviews ME. The MS Society Information Resource Line 1.800.344.4867