What's The Matter With Me? Podcast

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John is a husband and father with multiple sclerosis (MS) and that affects his life and work in many ways. Trained as an artist to imagine the soft edges of possibility, as a disabled person with MS he also experiences the hard edge of physical and cognitive limitation. As the owner of Hoppin Hot Sa…

John Hoppin

San Leandro, CA


    • Mar 19, 2025 LATEST EPISODE
    • monthly NEW EPISODES
    • 18m AVG DURATION
    • 225 EPISODES


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    Latest episodes from What's The Matter With Me? Podcast

    The Tamis

    Play Episode Listen Later Mar 19, 2025 32:43 Transcription Available


    Boom (explosive) Everybody in the house say What's The Matter With Me? Podcast! Doesn't really roll exactly? In "The Tamis," we've started down a road and we aren't looking back behind us. The episode finds us rolling the chair around Berkeley, thinking molecular gastronomy and cooking while disabled. Shoutouts To The Sandman, Etan Rechra, Tall John and Rocky Cal Performances Scene Ladysmith Black Mambazo creeped out my wife The "Walker" fiasco Are Marshmallows Molecular Gastronomy? Turns out, they're like foam Burning Up I burnt my elbow on the BBQ again. I stumbled and my arm touched the lid. A Paucity Of Heat And Warm Water Our furnace broke. Netflix Is Middlebrow We signed up for Netflix. We're watching "Killing Eve" and "Shameless" and it's garbage. Kitchen tools I own but can't use anymore The Tamis Making Rice Crispie treats isn't the best for one hand either. Parting Shots If you get one cherry in your Manhattan, it's a reminder that you should love someone but if you get two it's a message that you are loved Peter Coyote, the life actor and San Francisco Digger was a big part of the inspiration for It Can Change, a guerilla art troupe that I was involved with in college. 00:00:00 - Intro 00:00:45 - Shoutouts 00:01:43 - Ladysmith Black Mambazo at Cal Performances 00:04:54 - Ticket Subscriptions 00:09:03 - Berkeley Scene 00:10:12 - Walker Fiasco 00:13:14 - Are Marshmallows Molecular Gastronomy 00:14:27 - Elbow Burn 00:16:20 - Broken Furnace 00:17:15 - Netflix Is Middlebrow Entertainment 00:20:14 - Killing Eve Review 00:20:54 - Shameless Review 00:22:43 - HBO Is More Highbrow 00:23:18 - The Tamis 00:24:37 - E. Dehillerin Cookware 00:26:35 - One Hand Rice Crispie Treats 00:27:32 - The Meaning Of Cherries 00:29:05 - It Can Change 00:30:50 - Outro

    Cooking

    Play Episode Listen Later Mar 2, 2025 30:47 Transcription Available


    Whoomp! (Here It Is) Party on, party people: let me hear you touch the ground! In "Cooking," What's The Matter With Me? Podcast has all the pots on, the gas is burning and we're ready to go. This episode touches on cooking through limitations, self-imposed or otherwise (like a disability), with a trip to the military-industrial grocery store we know and love as Target, cooking @christinatosi with the kids and watching @majordomomedia food TV. Word From Sponsor Check Out Hoppin Hot Sauce On Amazon Shoutouts to Rocky Shopping List We're getting ingredients to make Rocky Road Sandwich Squares and some blondies from Christina Tosi's Milk Bar: Kids Only book. We changed plans and instead of our trip to the market in Berkeley, we headed to the desiccated old mall in San Leandro, to hit the Target for our military-industrial shopping list: 2 bags mini marshmallows (10.5 oz each) 1 bag semisweet chocolate chips 1 bag white chocolate chips At Target, there is aisle signage calling out the marshmallow section, where it's marshmallows floor-to-ceiling. Correction The Marlon Mullen show is at MOMA in New York, on 53rd Street in Manhattan. New Wheelchair in December, I got a new wheelchair. It's got a lot of good things about it: better fit, faster and more rugged. As with anything, there is a learning curve, and I'm trying to figure out the best way to use it. baby back ribs grilled indirectly. baked beans in the instant pot Majordomo Media Is Food TV Done Different For those interested, whether by absolute necessity or purely whimsical flights of fancy, in taking a different look at food, I recommend majordomo media and it's warren of YouTube channels. They make stuff with extremely unpretentious approaches, some of which are more-or-less accessible. At least. it's a different type of food tv, a bridge between daytime cooking shows and food influencers. It's refreshing. Otherwise you'll have to watch the I love Diet Coke guy. Hip Hop Journalism I wend to the San Leandro Public Library and scored some hip hop books. I put the Chronicles Of Doom on hold, and it recommended the others, so I bagged ail three. dilla time, by Dan Charnas Chronicles Of Doom by S.H. Fernando Sweat the Technique: Revelations on Creativity from the Lyrical Genius by Rakim Sizzle plate lunches Stale bread lunch. Broiling stuff together on a plate. About last night "Last night for dinner" journal is back. Blank Faceless Underwear I bought a postapocalyptic 4 pack of underwear from Costco, boxer briefs, black, blank. Faceless and nameless, unidentified remains, here I come.

    The UN-ghost REVEALED

    Play Episode Listen Later Feb 21, 2025 14:02 Transcription Available


    In the Season 9 Premiere, "The UN-ghost REVEALED" I return from ghosting the podcast since last year! I'm back and older than before! Various topics, no theme, chaotic dishevelment, dishevelry. Respect Due Canadians Did you see the game? Shout outs to our Canadian listeners, especially long-running ones from Edmonton like Sean Wingrave, shout outs to the Edmonton Oilers Driving all morning Just to miss my physical therapy appointment Shout outs to Mary, Nathan, Butters and Tibby. Thanks for the card. Guy Roasts Mailboxes https://www.tiktok.com/@droofreed/video/7358852048214887688?lang=en The guy roasts mailboxes, and that's fine, right? Meaning, "The Universe" AVANT-KRAUT GARDEN by El Universo El Universo is a cool psychedelic instrumental band from Mexico. Flowing The doctor gave me flonase, and it kind of works. I'm glad that you found new podcasts, or something else to do, but I'm more glad to be back. Message from Mom Hi John, I too can write poetry. This came to me as I was going to bed: I swallowed the last of my wine and went into the bedroom, looking for my water bottle. As I went to my nightstand, I put the water bottle on it, which I had been carrying under my arm. I thought to myself "hearing aids don't save everything."Haha. Savage Tune https://www.youtube.com/watch?v=heTV9zHMzKg Banshee's "Savage Man" was a song I enjoyed in 2024. Originally out in 2020, it was new to me. Kind of lo-fi metal. Marlon Mullen (b. 1963) uses art publications and other print material as points of departure for his paintings, generating radical reimaginings of these sources in which text and image are transformed through his dynamic color and composition. Marlon Mullen at MOMA, a self-taught disabled artist Strength In Numbers Foothill college bamboo In the summer, I went to the KFJC 65th anniversary listener appreciation party, where I wasn't the only attendee in a wheelchair and that was an opportunity to support each other. Chivalade Reviewed By Pat Cooper https://www.tiktok.com/@requination/video/7244979037553118490?lang=en Chivalade is a a type of Italian sausage, according to the movie. This week's selfie Be sure to subscribe. so you always get the selfie 00:00:00 - Intro: The UN-Ghost REVEALED 00:01:09 - Recap Montana 00:01:28 - Apology 00:01:45 - Wheelchair Travel Debacle 00:02:41 - Health Problems Mount 00:03:19 - Vacation From Heck 00:04:32 - Last Year 00:05:26 - Election 00:05:39 - Shout outs to Canada 00:05:52 - Four Nations Face Off 00:06:10 - Watching The Canadians play hockey 00:06:31 - Shout outs to Nathan Butters Tibby and Mary 00:06:37 - The Guy Who Roasts Mailboxes 00:07:30 - El Universo band from Mexico 00:07:58 - Flonase prescripttion 00:08:25 - Glad you found new stuff to listen to 00:08:36 - Shout out to everyone 00:08:50 - The Un-Ghosting, The UNreveal 00:09:05 - Message from Mom 00:09:54 - Hot Band Jam: Banshee, Savage Man 00:10:29 - Marlon Mullen at MOMA 00:11:09 - KFJC 65th Anniversary Listener Appreciation Party 00:11:51 - Chivalade Pascuale Caputo 00:12:28 - Season 9 UN-Ghost REVEALED

    Territorial Expansion

    Play Episode Listen Later Jun 19, 2024 32:46 Transcription Available


    Low Anxiety, Going Places In this episode, I give a shoutout to Kevin for Montana info, share insights from Andrew Pulrang's Disability Thinking, and discuss prepping Dax Pierson interview questions. I also talk about my kids' haircuts, our neighborhood, music, therapy, hospital visits, and my recent solo trips and poetry publications. Shout Outs Shout outs to Kevin. thanks for the info about Montana. Kevin does comic book reviews on his YouTube channel Under The Cowl Of MS. Disability Thinking Now reading Andrew Pulrang's Disability Thinking Substack. I've always been partial to the combination of disability with thinking, the guy's been on another level for a long time. Writing Dax Pierson interview questions. I have been lagging, trying to be recovered fully before doing the interview. I think it may be time to move forward. I'll Gladly Pay Tomorrow For A Haircut Today After months of hair drama, i took my kids to Supercuts and John's long hair was over in a moment. He was happy. With his new haircut, he's ready for summer. I'm glad that our neighborhood is a protected cul-de-sac. It means the kids can play outside with the other kids in the neighborhood and there's hardly any car traffic. New Music: Magic Fig, "Magic Fig" Magic Fig. San Francisco psych band. I heard it reviewed at the KFJC staff meeting and I ordered it from the group's bandcamp page. Cool new record – local band – insane amount of styles – dreamlike hooks – psychedelic SF – full sonic fireworks, Silver Current Label – over the top – combo Sid Barrett mixed with HR Puff n' Stuff KFJC Music Notes 6/5/24 24-Hour yogurt is smoother than 8-hour yogurt, go figure. I went to the Express Care at the Eden Valley Medical Center bc my ear was feeling blocked, like it had somebody's thumb stuck in it. They prescribed Flonase and something else, and they've been making it easier to breathe through the machine My anxiety is low, put fast away, like it's in the past. My talk therapist thinks it may be due to the EMDR therapy that we've been doing. Excursions I drove the kids to Foothill College where we went to KFJC and we hung out with Jack Tar and Good Karma before having snack on the quad, and then we drove to Hayward. In Hayward, we went to Burger King, a place the kids wanted to go badly after seeing the commercial a million times. Territorial Expansion The next day, I went to Oakland on my own. I've learned how to strap the wheelchair onto my car by myself. On Father's Day, I took the kids to Berkeley. We went to Amoeba Music, Moe's Books, Games of Berkeley, and had slices of pizza for lunch. My new expanded base of operations includes Oakland, Berkeley and Los Altos. Acceptances My ears were burning, my vibe was strong. Three poems were accepted for publication in two different journals. After a long gap, they were accepted in the same day by editors working half a world apart. It'll be my first time publishing my work in another country, and also my first time reprinting a poem. Stay tuned, you'll be the first to know..

    Skibidi Toilet Is A Part Of History

    Play Episode Listen Later Jun 5, 2024 Transcription Available


    A Toilet For The Ages https://www.youtube.com/watch?v=KrlkXOxlvCk I asked my son about skibidi toilet, and he replied: It's gone viral.. in fifty years, look in the history books, and there'll be skibidi toilet. Skibidi Toilet is a part of history. A 10-year-old Shoutouts https://www.youtube.com/watch?v=M6QOrgMeuMI Shout outs to Amy and Matt who had us over for a barbecueShout outs to Anthony was in town and came over It Sucks To Breathe Through A Straw My sleep apnea CPAP device has been having low pressure, making it hard to breathe through. Unsurprisingly, it triggers anxiety. It's like breathing through a long straw. To counteract the feeling of not being able to breathe, I adjusted the pressure on my sleep apnea device and slept longer. I'm trying to get an appointment with the sleep doctor. I've slept ok last the last four or five nights. Sisyphean Labor For Meager Reward Community radio DJ holding a torch aloft by the side of the inky black ocean Submitting poetry is comforting because the process is its own reward. It can just go on endlessly, a bit like the radio. Talking to my friends, many have some source of anxiety, from stress, responsibility, waking up in the middle of the night, no afternoon coffee, drinking beer and sleeping badly. I guess what I'm going through is a fairly common experience. I used Curb Free With Cory Lee! as a guide to book a wheelchair-accessible Alaska Cruise for 2025. This summer, we're going to Montana for family vacation. The new coffee machine is making better espresso. I haven't fully figured out how to steam milk and integrate that into my coffee making, so I end up with a cappuccino that is exactly the way I want it. I'm taking the kids to school in the mornings again. Uncontrolled anxious thought chains kept me from bed. I didn't get to sleep until after 1:00 a.m. Did It By Myself Today I did something I have been afraid of for months- since we got the wheelchair lift- I l loaded and unloaded my chair onto my van by myself.In November, when I got the chair lift, I assumed that I couldn't do it because there were straps and restraints to tie down the chair. A little complicated for me last year, but now, I've figured out some ways that I can use it on my own and there's no other way to figure that out but just doing it Thanks to my wife who supported me and who loaded my chair in and out of my van for years and now I figured out how I can do it on my own. I've needed a victory like this that I could point to and say, "I am improving." It takes a couple minutes to put my wheelchair on the car, but not very long at all. It makes me feel independent and that is very good. In related news, I drove and got my pants hemmed at John The Fashion Tailor in Oakland. I've been getting things altered there for 20 years. Hemming six inches off of my pants changed the proportion of my clothes. Skibidi Toilet is a part of historyI slept pretty well last night Skibidi Toilet Selfie 00:00:01 - Intro 00:01:57 - Last episode recap 00:03:54 - CPAP machine malfunction 00:06:09 - Submitting poetry 00:06:27 - Community radio DJ 00:07:23 - Many people have anxiety 00:08:27 - Wheelchair accessible vacation planning 00:10:19 - Curb Free With Cory Lee 00:11:52 - Missoula, Montana vacation 00:13:28 - New coffee machine 00:14:38 - Taking my kids to school 00:15:01 - Uncontrolled anxious thought chains 00:15:40 - Wheelchair lift breakthrough 00:18:14 - John the Fashion Tailor 00:19:58 - Skibidi Toilet is a part of history

    War On Sleep Anxiety

    Play Episode Listen Later May 21, 2024 30:56


    Compulsive behavior sequences are keeping me up at night, precluding a good night's sleep I'm driven from bed, get dressed, go outside to calm down, and eventually get back in bed. Out-of-control thoughts about the various trauma I'm going through overwhelm me, and soon I'm driven from bed again. Searched up 'strategy to stop repetitive behavior compulsive' at 130am: Sleep anxiety is a feeling of stress or fear about going to sleep. Anxiety is the most common mental health disorder in the U.S. Research suggests that most people with mental health disorders like anxiety also have some form of sleep disruption. Treatments may include therapy, better sleep hygiene or medication. "Sleep Anxiety," Cleveland Clinic Drop-off is the new normal I took the kids to school again. We listened to KCSM, the Bay Area's Jazz Station, on the short drove to school. my daughter said it reminded her of Grandma's house, where indeed there is always jazz on the stereo. I told her about how I grew up listening to jazz on the radio. Good Things Are Happening My walking is definitely improving. Soon, I hope I can go to KFJC on my own. I'm working up to it. First, I got to get a good night's sleep. I'm falling in love with the new cat. Subscription Package We subscribed to The 2025 season of @calperformances. We're going to see @therealmambazo @SamaraJoy99 @AntonioDrumsX @ZakirHtabla. I'm very excited. 3D Opera Glasses Back in the day I saw Phillip Glass perform "Monsters Of Grace," directed by Robert Wilson in Zellerbach Hall, and it was very spectacular. Originally, Wilson intended the fantastical scenarios he envisioned to actually be staged. When he realized the enormous costs and effort that would be involved in performing such a project (which included such tableaux as a gigantic hand pulling a sword from the ocean and a helicopter flying over the Great Wall of China), Wilson and producer Jed Wheeler began looking into creating the entire visual end of the production with 3D computer graphics. ... One major drawback that seems to have been the project's main flaw was the length of time required for creating and rendering the animation. It took twenty animators almost a full year to complete the footage based on Wilson's original intent. Wilson, who has been described as liking to maintain great control over his projects and to change details at the last minute, gradually grew frustrated upon seeing how much time was required to change the animations, and ended up distancing himself from the animators. This led to a final product that, from his standpoint, was unpolished. In an interview with the New York Times, he remarked, "This is like being a dog with a litter of puppies that went away six weeks later. . . . Here I was working with people who didn't know my work, in a medium I didn't know." "Monsters Of Grace" Wikipedia page We won't be seeing that again. We subscribed right after they announced the schedule, which reserves us a place in line to get ADA seats. Back on the exercise bike New Coffee Rig A new espresso machine is coming - the Lelit Victoria. It's an updated version of the 30-year old machine I use currently. Back And Forth The new therapist is doing eye movement therapy, called EMDR. Eye movement desensitization and reprocessing therapy, commonly known as EMDR, is a mental health therapy method. EMDR treats mental health conditions that happen because of memories from traumatic events in your past. It's best known for its role in treating post-traumatic stress disorder (PTSD), but its use is expanding to include treatment of many other conditions. "EMDR," Cleveland Clinic Winning 3:33 I'm winning the war on anxiety, because I won't have it any other way. Sleep anxiety is making things difficult. I drove to Emeryville and get my haircut from Anjela at New Florence Salon. A few days ago,

    Slogging Through

    Play Episode Listen Later May 14, 2024 30:58 Transcription Available


    Getting through anxiety one day at a time, one step at a time, putting myself out there. Slogging through. In the news Paris Promised the Olympics Would Be Accessible. The Clock Is Ticking. Article: Paris Promised The Olympics Would Be Accessible The city, which put inclusivity at the center of its bid, has improved access for people with disabilities, but with the opening ceremony about 12 weeks away, obstacles remain. Slogging through Processing what's happening One of the hardest things about Multiple sclerosis is wrapping your head around it. being cool with the things that are happening to you in the processes that you are part of accepting them is very difficult. maybe it doesn't have to be. in Buddhism they say that all life is suffering, but some of it is unnecessary. Maybe it's important to accept myself and what's happening, that it is okay that you are okay it has been okay it is okay and it will continue to be okay. I am thinking about that because I am going to start talk therapy again I'm getting some relief from anxiety. taking it easy Last night I made rice and beans and we had it with eggs and salad Bailey, a female wrestler on smackdown from San Jose CA It rained on free comic book day anxious feelings are difficult to control back pain creating a nerve tingle in my groin and knee difficulty sleeping I play an impartial judge in mayhem special. Jersey girl and max levels I drove to the coffee shop and didn't give up until I got a cappuccino - twice drove to Oakland and pumped my own gas Mayhem Max level picked me up at my house and drove me to kfjc where we broadcast the snap crackle pop special with Jersey Girl. shout outs to max level Jersey Girl circumference, Robert Emmett and the sandman everybody played a role radio helped anxiety - in the moment New Therapist New talk therapist began. we spoke about the bad anxiety i was feeling, the anxious thoughts and the need to tell the doctor that the medication was not relieving me. my therapist has worked with disabled people before, and some of them could not communicate, so they had a hard time advocating for themselves. insomnia. anxiety. panic when I liey down. the numbness inside my head becomes my focus, and I obsess over it. eventually I calm myself enough to lie down, then the cycle begins anew I drove my family to a baby shower in Dublin for one of my wife's coworkers Selfie 00:00:00 - intro 00:00:47 - paris promised the Olympics would be accessible 00:03:59 - slogging through anxiety 00:07:41 - it is ok, it has been ok, it will be ok 00:09:06 - relief 00:09:54 - cracking crabs at market hall 00:12:53 - wrapping your head around MS 00:14:12 - new talk therapist 00:15:24 - back down the track 00:15:48 - boys time 00:16:13 - cooking to find noormalcy 00:17:06 - Bayley, wrestler from san jose 00:17:48 - rainy free comic book day 00:18:08 - anxiety thoughts 00:19:42 - snap crackle pop kfjc mmayhem special 00:20:49 - getting around on my own 00:21:48 - taking the kids to school 00:22:58 - shout outs 00:23:28 - broadcasting in the moment 00:24:21 - advocating at the doctor's office 00:25:20 - changes in sensation 00:26:11 - baby shower 00:27:55 - cirque du soleil 00:29:28 - outro

    Anxiety Medication Strategy Session

    Play Episode Listen Later May 7, 2024 25:34 Transcription Available


    In "Anxiety Medication Strategy Session," changing opinions on music, bouts of anxiety, recent publication in Identity Theory and Disturb the Universe, family life changes, increased mobility, and resumption of some duties. Last Old Guy Or First New Guy? Recently, I read a tweet by flea, and I was forced to reconsider: https://twitter.com/flea333/status/1774601328502898936 https://youtu.be/QEgalcH_-b4?si=q7ZD6rdC4ZhfnwbY&t=1762 Pat Matheny on German jazz critics Pat Matheny was a jazz guitarist that my stepfather really admired. For that reason, in my youth I stayed away from it. In general, I mind it less now that I am older, but I generally don't seek it out. Sometimes, a random tweet by flea will turn decades of tradition on its head, and I'll be forced to reconsider. In an interview with Rick Beato, Pat Metheny had this to say about musical invention: German jazz critics are great. They'll come right out and say the most direct thing. I had a guy say to me-- you know, not that long ago, maybe 10 years ago-- "Are you the last old guy, or are you the first new guy?" and the thing is, I bet you know what he means too, right? Yeah, of course.. I mean, for me, both. Well, I don't know, I mean, you know, it's hard to be objective about your own thing, but what I will say is that, for me, there was no option other than trying to invent stuff, yeah. Anxious feelings I had a bout of anxious feelings and panic. I reached out to my care team and spoke over video and in-person at the office with my doctor the next day. We think it could be related to switching off of nerve-pain medication post-surgery. Marinated Spicy Chicken Thighs Recipe Over at Hoppin Hot Sauce, there's a new recipe for Marinated Spicy Chicken Thighs marinated in yogurt, salt, and Hoppin Hot Sauce. "Vern" published in Identity Theory I'm happy to announce the publication of “Vern” in Identity Theory, selected by Micro Editor Vic Nogay. Many thanks to the publisher Matt Borondy. “Vern” is a 50-word story about the workplace injury sustained by my great grandfather, T. Vernon Smithson, at the cotton gin in Mount Juliet, Tennessee. Identity Theory is an online magazine of literature and culture publishing interviews, prose, poetry, art, commentary, and other inventive explorations of humanity since 2000. "Vern" published https://twitter.com/IdentityTheory/status/1783167798942023891 Reading "Vern" for Identity Theory "Hot Day" published in Disturb The Universe I'm happy to announce the publication of my eco-disaster poem, “Hot Day” in Disturb The Universe Magazine, April 23, 2024. The poem takes place in a decomposing world in thrall to “inevitable circumstances/ That can't be avoided.” According to their website, “Disturb the Universe aims to share writing on the edge from writers strongly inhabiting their voice.” Many thanks to Editor in Chief Skaja Evens. "Hot Day" published Non-stop publication action Is disguising the inevitable sinking feeling but it has to be in there, somewhere. Domestic Emptiness For the first time since 2020, my wife is back to the office four days a week. It's probably a big change for her. She comes home bursting with stories of her new gig. She seems very stimulated, and I think that's a good thing. Our home is empty during the day for the first time since we moved from San Jose. More walking I'm in my wheelchair less and less, and walking more. This week I went to the library on my own, walking in and out from the parking lot, trying to build stamina. I went to the doctor without the chair. I use it when we go to the market, any time when I'll have to do extended walking or to carry things. Resuming Some Duties Last week, I picked up the kids from school and picked up the vegetable box - something that I haven't done more than once or twice in the past year. I made an appointment to get a hair cut in a couple weeks,

    Publication Barbecue

    Play Episode Listen Later Apr 23, 2024 18:16 Transcription Available


    Featuring updates on Hoppin Hot Sauce inventory, newly published writing, recuperation from surgery, the year's first barbecue, and a new family pet. Sandman Knows Kale Shout outs to the Sandman, who wrote in about kale and he knows more about kale than I ever will. He works with kale as a kaleologist. Extra Hot Shortage Buy Extra Hot Hoppin Hot Sauce from Amazon as we will be out of stock on Extra Hot in the near term, and once Amazon runs out, we're out. Publication Instant Noodles published my 50-word story "CYBERTRUCK DENTAL, S. DE R.L." The link to the stuff that is published, along with what's upcoming is on the Publications page of my author site jwh.whatsthematterwithme.org The sinking feeling you have after publication is the same one you have after you have an art opening. Everything returns to normal. Banal, mundane, normal. But in fact, I did accomplish something. What I set out to do: become a published writer. The thing rolls on, even: a second 50-word story will be published in a different publication next week. I recorded myself reading it in a video at the request of the editor. Surgery Update Looking at the calendar, it's been about 4 weeks since I had surgery. I've reduced my medication down to the pointt where I'm almost completely titrated off of the pain medications I've been taking for months. New New Cat We've got a new cat at the house. It's a two-month-old kitten that's part-lynx. It's in quarantine for the next 10 days, maybe more. Barbecue I lit the barbecue for the first time this year. Now that my meds are reduced, I feel like not as scary to grill. For the first go-around, I made skirt steak and eggplantLast night, I grilled a pork tenderloin with whole grain mustard, brown sugar and Shaoxing wine. We ate it with steamed new potatoes and boiled carrots. Hollywood We ordered a new juniper tree, a 'Hollywood Juniper' juniperus chinensis var. kaizuka. Remodeling After launching my writer's website, I'm remaking the whatsthematterwithme.org website with the same theme. If it all goes well, I could see myself redoing HoppinHotSauce.com the same way. Gary in the press Installation view of Gary Cannone's Manet/Degas at Compound Yellow, Oak Park, Illinois (photo Jonas Müller-Ahlheim) Past WTMWM? interview subject Gary Cannone got a great write-up by Lori Waxman in hyperallergic about his solo show at Compound Yellow in Oak Park, IL. Check out the Gary Cannone Interview Special here. Gaining equilibrium For the first time in months, I got up from the couch by myself. A couple of times Selfie Publication Barbecue selfie 00:00:00 - Intro 00:01:03 - Hoppin Hot Sauce Jingle 00:01:20 - Shout outs 00:02:01 - Instant Noodles Publishes "CYBERTRUCK DENTAL, S. DE R.L." 00:02:34 - The feeling you have after publication is the same one you have after you have an art opening 00:03:17 - another story will publish next week 00:03:35 - Writing site at jwh.whatsthematterwithme.org 00:04:03 - RF Rhizotomy recovery update 00:06:05 - Tapering off habit-forming medications 00:07:08 - We have a new cat 00:09:03 - First barbecue this year 00:10:15 - The Way I Grill Charred Eggplant 00:12:42 - New Juniper Tree 00:13:43 - Remaking whatsthematterwithme.org 00:13:55 - gary cannone hyperallergic writeup by lri waxman 00:14:35 - getting up by myself 00:16:11 - Outro

    Surgery Publication Vacation

    Play Episode Listen Later Apr 16, 2024 39:33 Transcription Available


    Period of Change Undergoing a period of change: I had surgery, I got published and I went on vacation. Plenty of new music reviews in this episode. A word What's The Matter With Me? Podcast is sponsored by Hoppin Hot Sauce. Order it on Amazon. JWH Live! Writings By John Winfield Hoppin is live, because my editor said I needed a writer's website. I think it's pretty nifty.. Selfie Edict Subscribers get the selfie for as long as we all live. It's a lifetime subscription Shout outs https://twitter.com/MarchandsPetRat/status/1779926937177358503 Shout outs to Marchandspetrat, hockey s-poster living with MS Shout outs to Rocky, Cousin Eric Gotta write up questions Nerve Bumps (A Queer Divine Dissatisfaction) by Dax Pierson Upcoming interview subject Dax Pierson Shout outs to the Sandman who turned me on to James Wavey Snowy Beach, which was added recently at KFJC. Psychedelic hip-hop from San Francisco James Wavey Snowy Beach by James Wavey Publication Dream Comes True I was accepted on a piece of writing, and for the first time I made a signed agreement. Follow JWH Live! to hear more about the writing. In the days before surgery In the run-up to surgery, in a lot of trigeminal neuralgia pain, I increased my dosage and I felt like it was too much. Trying to even things out, I reduced by 25% overall, and it helped return me to the land of the living. No coffee, no ibuprofen. On a day when I would usually be recording, I went to the hospital to have surgery, my third RF Rhizotomy and fifth neurosurgery on my trigeminal nerve overall. I had two MVD (microvascular decompression) surgeries to begin with. Recovery is much easier with rhizotomy. MVD literally bores a hole in your skull, and it takes a lot of recuperation to heal. Hospital stay from rhizotomy can be as short as a few hours. New tunes In advance of surgery, maybe to take my mind off it, or to give myself something to look forward to, I bought some tunes. Opera Glossolalia Spontaneous Musical Invention by Thomas Buckner sings Robert Ashley Robert Ashley is a composer of 1980s opera. There's a lot of talking in the libretto. The gatefold record comes with a cool book with photos. I really like the Recital label because they have interesting packaging. The record is one of 350. Instructions? Whiplash by Asha Sheshadri This record is like sound art, but at the same time it's a record. I'Layered, specific, related to site. Like getting a bunch of jumbled-up instructions for a treasure hunt, cryptic. Edition of 200. Chewing Gqom The Gqom Trilogy by DJ Scriby // DJ Marillo // DJ Skothan // Gqom is known for its beats which have a minimal, raw and repetitive sound with heavy bass. It is mainly described as having a dark and hypnotic club sound. The style of beats does not use the four-on-the-floor rhythm pattern which is often heard in other house music. "Gqom" Wikipedia article Digging this record - I'm new to Gqom, but I like it. The release is by three different DJs, a triple EP. Drunk in Love by Elvin Brandhi & Lord Spikeheart This is far out. File under extreme vocal performances. The feeling is metal, but the sound is electronic. Tense, spastic. Questionable in a good way, challenging material. Numb Now I'm back from surgery and my face feels different. Talking and eating and I'm sure other things that I'm not noticing are affected. Familiar disassociation after surgery. It's a matter of deciding how I feel about the things that are different. First, I have to accept them. Updating the map After surgery, it takes time for my body to properly calculate changes in sensation, and adjust the body's size map accordingly. In tune The piano is tuned Out on my own Drove to Oakland by myself and went to a couple of friend's houses for about 3 and 1/2 hours. It was the first time in 16 months.

    Drugged Out

    Play Episode Listen Later Mar 26, 2024 9:14 Transcription Available


    In "Drugged Out," a short episode featuring wine delivery, toilet paper shortage and trigeminal neuralgia pain medication. Long Time Subscribers get the selfie for as long as we all shall live. It's a lifetime subscription Green fluid Cuts in my hands have been getting infected and filling with green goop In Our Cups We got the wine delivery, man, and the wine deliveryman was in his 20s, maybe his mid-20s, and he was really upset about global warming. "Things aren't l really pleasant anymore," he said. I felt for him. "I feel for you," I said Toilet Paper Shortage We still have a case of Bulgarian toilet paper that has no perforations and ripping it feels like tearing up someone's college application, or well-qualified resume printed out on nice paper. Remember back in 2020, when there wasn't toilet paper? We bought a case of Bulgarian toilet paper and it was like riving a sheet of Bristol board to rip a sheet off. There were no perforations, it was 80% normal size so it didn't fit on the roll, Thing I Know I watched the "Taylor Swift: Eras" movie with Koko, so I know about Taylor Swift now. Not sure what, but I know it. The movie is long, but not as long as "Killers of the Flower Moon." She gets into slang patterns thata made me uncomfortable. To get it going, I had to figure out my Disney Plus login credentials, and that, in itself, is a big bonus. Electric Wire Buried In Flesh I'm drugged out! I experienced severe face pain once before bedtime, and then many times (a couple dozen?) after 4am. I cut out coffee, ibuprofen and started going up on my medicine that day, settling on twice of my usual dosage. That was too much, and I became extremely drowsy and experienced visual, balance and energy side affects. Eventually I settled around 175% of my usual dose, which. for the moment, is keeping the pain away and limiting the worst side effects. Surgery is next week, my third RF rhizotomy. I knew this treatment could recur and that it was not necessarily permanent. Let's hope the third time's the charm. 00:00:00 - Intro 00:00:22 - Shout outs 00:01:08 - Jingle 00:02:00 - "Taylor Swift: Eras" movie review 00:02:13 - Bulgarian toilet paper 00:04:42 - Trigeminal neuralgia returns 00:07:45 - Outro 00:08:44 - Wine delivery


    In "Spring Concert," an incidental return to Dry Marchuary, a chapbook's worth of poetry and the school's Spring Concert. From chaos comes order One way to enjoy Hoppin Hot Sauce is "On Pasta". In the midst of near-total chaos, small rituals ground us, nourishing both body and soul. "On Pasta" at HoppinHotSauce.com Shout outs Shout outs to schwabino kickin fatal aikido kung fu karate they bout to find your body you better ask somebody mymedia designer.com tell a friend to tell a friend about my media designer See for yourself Spring Concert Selfie My hair is long as it's been since 2009! See for yourself above. Subscribers get the selfie e-mailed to them, they don't even have to do anything, just lay there. It's an NFT, it's collectible, it's a blockchain. Blockchain sounds like a necklace to me Lost Weekend Here I Come The wine delivery is coming tomorrow. In the meantime, we've been back to "One Or Two Beers Dry January-February-Marchuary" mode, just for the past few days. Long live one or two beers Dry January To go in your chaps Hippie chapbooks A chapbook is a small publication of up to about 40 pages, sometimes bound with a saddle stitch. "Chapbook," Wikipedia I collected what poetry I have written since I moved here in 2021. It's over 45 pages, and Wikipedia says it's enough to make a chapbook. Let my children play music Once upon a time in the auditorium I went to the San Leandro Unified School District Spring Concert in my wheelchair, to see my son play trumpet in the spring concert. Once upon a time in the auditorium Chapter List 00:00:00 - Intro 00:02:47 - From chaos comes order 00:03:21 - Shout outs 00:04:10 - Long Hair 00:05:23 - Wine delivery 00:05:58 - Poetry Collection 00:06:57 - Chapbook 00:09:04 - Writing in Google Keep 00:09:43 - Spring Concert 00:14:27 - Attending The Concert

    I Drove

    Play Episode Listen Later Mar 12, 2024 16:51


    In “I Drove,” getting reacquainted with driving, where did kale come from and borscht out the wazoo. Iconic trio At Breakfast is a great time to have Hoppin Hot Sauce. Just like the iconic trios of Larry, Curly, and Moe, or black, white, and grey, or even the Roman numerals I, II and III, eggs, English muffins and Hoppin Hot Sauce form an unforgettable trio that's sure to become a favorite in your kitchen. Shout outs Shout out to Jersey Girl and Max LevelWe're going to broadcast a game show in MayI'll be the score No matter what Selfie Selfie or no selfie the email is going out - grab it while you are still living, go to whatsthematterwithme.org and click subscribe I drove Two lane blacktop I drove my van. First, around the block. Next, to the library, where I saw men with nowhere else to go walking around the library grounds in the rain an hour before opening. Finally, I drove to Oakland, up 580 and to Piedmont Avenue, to Cato's Ale House. I photographed it from my parking space and texted it to my buddy, lamenting that it was too early for beer. He replied, "It's never too early for beer." It's good to have friends. Shout out to Matt. Turning around, I drove back home. Where did kale come from? According to the "kale" page of Wikipedia, Kale came to America in the 19th century from Croatia, brought by USDA botanist David Fairchild, who did not eat it, who detested cabbages of all sorts. Borscht We have a freezer full of borscht. Chock full of borscht, we have borscht coming out the wazoo. My aunt and uncle were in town and we had them over for lunch. We ate borscht. Two lane blacktop Chapter List 00:00:00 - Intro 00:00:42 - At Breakfast 00:01:55 - Shout outs 00:02:56 - Selfie or no selfie 00:03:20 - I drove my car 00:04:38 - Fear of driving 00:05:41 - Men with nowhere else to go 00:08:16 - Slash at the Oscars "I'm Just Ken" 00:09:41 - Where did kale come from? 00:12:11 - Dax Pierson interview upcoming 00:13:07 - Borscht 00:13:35 - Aunt and Uncle ate borscht 00:14:09 - Losing 00:14:34 - Outro

    Buying A Used Wheelchair

    Play Episode Listen Later Mar 5, 2024 31:35 Transcription Available


    In "Buying A Used Wheelchair," breaking my wheelchair and buying a new one on Craigslist, more record shopping, cooking borscht and getting accepted for publication. Every week we order pizza from the place in town. On the day after, for lunch I eat cold pizza with Hoppin Hot Sauce on it.(Hoppin Hot Sauce jingle) Those who say don't know & who know don't say Buying a used wheelchair selfie Subscribers get the selfie and the show notes e mailed to them, and I don't know what they do with them Record shopping I went record shopping at Amoeba and it turned out to be a pretty good score: Something Is Wrong (Vintage Recordings From East Africa) Fiona Apple, "Tidal" Black Top Blues-a-rama, Volume 2 Live at Tipitina's, New Orleans J Dilla, "Donuts" The record store person gave me "the nod" Terminal Event I broke the arm off of my wheelchair, with a bang. The manufacturer was out of stock, but I needed to find a replacement. I got on my computer and I searched eBay and sfbay.craigslist.org. craigslist came through for me Cooking While Disabled We made borscht. For the second year in a row, we used this Serious Eats recipe for Hot Ukrainian Borscht (With Beets, Beef, Pork, and More) Accepted After an uninterrupted months-long streak of many rejections, a few different editors wrote me to let me know that my writing was accepted. All in all, a piece of microfiction (in this case, a story of exactly 50 words) and two poems. It's very exciting to turn the corner on this project and move from submission to publication. Chapter List 00:00:00 - Intro 00:05:04 - Subscribers get the selfie 00:06:01 - Record shopping 00:13:36 - Terminal event 00:21:08 - Borscht 00:27:58 - P.T. 00:29:30 - Outro

    Swift Correction

    Play Episode Listen Later Feb 27, 2024 23:00


    In "Swift Correction," Taylor Swift wrote all the songs, hoping everything's okay, and a sprained knee. But first, I'm programming robots to do my bidding! I can feel it-- success is near at hand. Automaton I I spent all day working on an automation to send posts created on the Hoppin Hot Sauce blog out to the mailing list automatically. Automations help multiply my actions which is important so I can conserve energy and avoid fatigue that comes with MS. Hopefully, I can stay in better touch with the hot sauce audience. Automaton II Swift Correction selfie Previously, another automation I made sends new episodes to our What's The Matter With Me? Podcast mailing list. Subscribe today. Subscribers get the selfie along with show notes. Cool thing Hoppin Hot Sauce is a disabled owned & operated business Shoppers at our Amazon store support disabled-owned business Hope everything's okay About the time when we were driving and we saw two fire trucks and an ambulance. My wife said. "I hope everything's okay." To which I replied, "Clearly, it isn't." Correction: Taylor Swift wrote all the songs Correction: Taylor Swift wrote all the songs My wife texted: "The standard edition of 1989 (Taylor's Version) comprises 21 tracks: re-recordings of the 13 songs from the standard edition of 1989, re-recordings of the three bonus tracks from the original deluxe edition, and five previously unreleased "From the Vault" songs that were written for the 2014 album but excluded from the final track list. https://en.wikipedia.org/wiki/1989_(album) I don't think the Taylor's version are covers." Of course, she was right. I tried to explain it in the episode, but it's really very complicated. Path of pain The path of pain began when I sprained my knee. Unfortunately, I fell in my bathroom, and bent it the wrong way. After that, I was leaning heavily on my cane, which caused soreness in my left pectoral area. The pain traveled from there down my arm, stopping in my bicep, forearm, wrist and hand. It was painful, like sitting cross-legged but the heel goes outward instead of inward. The bruise was on the inside of my knee. Recovery proceeds, slowly, haltingly; I'm trying to stay off of it as much as I can. Bueller... Bueller... I'm practicing for the CBEST California substitute teacher exam. Correction: Taylor Swift wrote all the songs Chapter List 00:00:00 - Intro 00:01:43 - Subscribe to get the selfie 00:02:27 - Taking the selfie 00:03:18 - I created some automatons 00:06:22 - Conserving energy 00:07:06 - Hoppin Hot Sauce Jingle 00:07:24 - Hope everything's OK 00:08:49 - Taylor Swift Correction 00:14:31 - It happens every night 00:18:28 - The Path Of Pain 00:19:26 - Substitute teacher exam 00:21:43 - Outro Taylor SwiftAutomatonHoppin Hot SauceMS (Multiple Sclerosis)Trigeminal NeuralgiaPodcastAutomationPain ManagementDisabilitySubstitute Teacher Exam (CBEST)

    Wheelchair Dig

    Play Episode Listen Later Feb 20, 2024 27:26 Transcription Available


    In "Wheelchair Dig," a dinner party, shout outs and a family trip to the record store. Amidst discussions on music finds, including Eminem and Taylor Swift covers, touching on the disappearance of People's Park, radio's outreach to marginalized communities, and the place of 'inspirational' content in disability culture. Canvas for hot sauce We had our neighbors over for dinner last night and we made pulled pork sandwiches and coleslaw. The kind of thing just perfect for hot sauce. All-KFJC Shouts Shout out to the sandman who wrote in for a fresh fish recommendation in the South Bay. So I gave up all my spots to him? Shout out to Jersey girl and Max level There's only one way Subscribe and get the selfie Wheelchair dig https://www.flickr.com/photos/caltex98/46968846481/ Amoeba Records Berkeley Went record shopping at Amoeba in my wheelchair with the family Finds https://www.youtube.com/watch?v=X3_SPhBqG2w I found a 3cd set of Codona on ECM used / don cherry nana vasconcelos and collin wallcott. It's proto-'world music' https://www.youtube.com/watch?v=Z5KiSu1-2ko my son got eminem's "Marshall Mathers 2". he is having emotional problems, so I see why he is connecting with this. https://www.youtube.com/watch?v=2JgvVfOfoWI My wife and my daughter went in on the taylor swift covers cd taylor's version - electropop, powerful music - the frequencies are on blast, it peels your eyelids back and curls your eyelashes. plenty rizz, more drip than expected, pretty obvious why she's a spectacular pop star people's park is gone - three cops guarding the shipping containers blockading it - bad vibes Inspiration to who? https://www.youtube.com/watch?v=8K9Gg164Bsw Is There A Healthy Place For ‘Inspirational' In Disability Culture? Andrew Pulrang Disabled people have complicated relationships with a lot of words. But the one word other than “disability” itself disabled people feel most intensely about may be the word “inspirational.” Andrew Pulrang Broadcast Digging in the crates The radio and other broadcast media is egalitarian in the way it approaches disabled people and unpopular people. The voice on the radio is the companion that they have. Homeless people, weirdos, prisoners, anyone who tunes in can listen On that note, email me Digging in the crates Chapter List 00:00:00 - Intro 00:01:01 - We had our neighbors over 00:01:30 - Hoppin Hot Sauce Jingle 00:02:03 - Shout outs 00:02:10 - south bay fresh fish market recommendations 00:03:35 - Jersey girl and Max level 00:04:23 - subscribe and get the selfie 00:05:31 - record shopping at amoeba Berkeley with the family in my wheelchair 00:08:00 - i found codona trilogy on ecm 3cd set used 00:10:54 - my son got eminem 00:13:25 - taylor swift taylor's version cd 00:18:11 - people's park is gone 00:20:20 - being inspiring is a drag 00:24:25 - voice is on the radio 00:25:46 - outro People's ParkBerkeleyDisability cultureInspirationalAndrew AngElla YoungRadio broadcastingAmoeba Berkeley (record store)Hoppin Hot SauceRecord shoppingMultiple sclerosisTrigeminal neuralgiaEminemTaylor SwiftJazzHip hop

    The Music Episode

    Play Episode Listen Later Feb 13, 2024 22:01 Transcription Available


    In "The Music Episode:" "Let's Paint TV," Ludacris color story meme, and keeping the kids in their rooms by tuning in to Day Of Noise on KZSU. When life gives you shoes.. make shoeanade The new shoes that I got in the last episode are working out. They're made by a company called Drew I swear it's true Semi-transparent guitarist playing a record store "in store" gig with red paint scrawled all over its face This is the music episode Spicy Roasted Pistachio Nuts The Spicy Roasted Pistachios with Hoppin Hot Sauce Extra Hot came out but there was one problem - i couldn't stop eating them - we'll eat them at the Super Bowl, if they last that long I'm writing an email blast about them, and I made some cool collages, like this one, of the guy who coined the term 'umami' Umami means "delicious taste." in Japanese. The Struggle Is Real If Sisyphus was alive today, he could have a podcast about going up the hill and rolling the boulder over and AI would say it was a multi-faceted discourse. Chairpiphany It helps when I search for stuff using my wheelchair not walking around. BC then I actually look around, instead of focusing on walking, trying not to fall, as usual. Berkeley Rock Stars https://www.youtube.com/watch?v=CnQ8N1KacJc I got a fragment of The time of your life Green Day song stuck in my head, but only the title, and even that I got wrong. Not Like The Others If you're like, "This certainly isn't like another podcast," make sure to subscribe to get the selfie. Here Be The River Of Pain Changes in the weather: the atmospheric river pointed at California is screwing with my face a bit. Stinging me, stabbing me - out of nowhere. Ultimately Very Listenable https://www.youtube.com/watch?v=CFEY7Aw7S7s&t=1848s Thiis is from "Let's Paint TV," hosted by the Los Angeles artist John Kilduff. Once the novelty of his multidisciplinary multitasking wore off, which, I admit, took a while, I found it soothing and ultimately very listenable. He has an etsy store, with lots of items for sale at a very reasonable prices considering the obvious talent involved. For real - I mean, could you do this? I couldn't, and I appreciate him for what he has done. Appealing Color Story Hip Hop Rap Ludacris Meme I created the Ludacris meme "Mauve birch" My Children Were On Lockdown It was the day of noise on KZSU. The 24-hour live marathon of noise and experimental sounds kept the kids out of the main room of the house, in their rooms with the doors firmly shut, pretty much all day. Keeping It Going On the day after Day Of Noise, my daughter had a playdate. While it was going on, I put on Escalo Frio by Otto Von Shirach which was more of the same. Escalo frio means shiver in Spanish. The record features an appearance by Matmos. Before putting it on I told my wife it was dance music and I admit, that was misleading. No Test Drive Abilities expo isn't happening in the bay area this year but it is happening in Los Angeles in mid March. I can get another of the same wheelchair that I already have, however I would like to have a chance to look at the options in a hands-on way. The Music Episode Selfie The Music Episode Selfie One More Time This is the music episode. Semi-transparent guitarist playing a record store "in store" gig with red paint scrawled all over its face Chapter List 00:00:00 - Funeral song 00:00:52 - ATMOSPhERIC RIVER TRIGEMINAL NEURALGIA 00:01:13 - New Drew Shoes 00:03:05 - This is the music episode 00:03:59 - Ikeda who coined the term 'umami' 00:05:13 - HOPPIN HOT SAUCE jingle 00:05:14 - If Sisyphus was alive today 00:05:44 - Search by wheelchair 00:06:54 - "Good Riddance" Green Day 00:08:05 - Get the selfie 00:10:10 - John Kilduff / Let's Paint TV 00:13:44 - Ludacris meme "Mauve birch" 00:14:44 - KZSU Day Of Noise 2024

    New Shoes 2KXXIV

    Play Episode Listen Later Feb 6, 2024 27:48


    SEASON 8 EPISODE 4"NEW SHOES 2KXXIV" In “NEW SHOES 2KXXIV,” I get new shoes for the first time in years, piece together a classy color scheme of colors with gross-sounding names and austerity in the UK impacts people with disabilities. Through this episode, I invite you to join me in unraveling the complexities of this multifaceted experience. Hoppin Hot Sauce Toasted Pistachios 1 cup pistachios, 2 teaspoon whole cumin seed, 1 teaspoon aji-no-moto, 1 Tablespoon Hoppin Hot Sauce, salt, olive oil. Stir together and lay out on a baking sheet lined with a silicone or parchment baking sheet. Place in a 350 degree oven for 3 to 4 minutes. Stir, and return to the oven for 3 or 4 minutes, until the cumin is fragraant. Let them cool for a few hours. Once I got going, I was unable to stop eating them even for a sip of beer. Shout outs Shout out to Matt who was into the blood episode - we watched the playoffs with our families Geographical Shout outs Shout outs to the cities, towns and countries that listen to this podcast Green Kitchens Sicken Millions Color scheme made up of Gross sounding colors like taupe and puce Mauve birch get out the way Don't Pull The Trigger On A Face Tattoo Reminder to the listeners as an alternative to getting the facial tattoo is to subscribe to the newsletter If I were ever to have an advertiser maybe a good one would be tattoo removal Cursing For Kids Swearing nursery rhymes like Little Miss muffet sat on her motherfucking tuppet eating her curds and way shit Stompin' in my Drew Force V I got new shoes - at walk rite for life who set me up with a custom fit, which I need to fit my AFO inside Less than total teetotaling "one or two beers half-january" is finally over Putting us all together Due to budget shortfalls, city councils in the United Kingdom are considering cutting assisted living programs and forcing disabled people to move into state-run facilities. If you want a symbol of this country's shredded safety net, look no further than Mark in Bristol. For the past 30 years Mark, who has cerebral palsy, has lived in his accessible bungalow with the support of personal assistants. That care package has enabled the 58-year-old to build a life at the heart of his community: from being a governor at the local school and training as a social worker, to holding a season ticket for his beloved Bristol City football club, “It's more despair than joy,” he smiles. From next week, that life could start to disappear. As the latest local authority to strain under growing social care costs and dwindling resources – the city faces a budget hole of £17m next year, expected to rise to £32m in the years to come – Bristol council is proposing a “cost-effective” solution: if a disabled person's in-home care is not considered “best value”, they could be told to live in a care home instead. It is the stuff of a domestic horror movie: a bureaucrat deems your life too expensive, and you're forced to pack your bags and spend the rest of your days in an institution. Frances Ryan, "Think of this: a plan to ‘warehouse' disabled people. What kind of nation is Britain becoming?" Thu 25 Jan 2024 Laughing Fools We had our friends over to watch the football game I undercooked the beans again but it didn't matter, we had a good time Afterwards, my wife and I laughed so much at bedtime, being goofy "New Shoes 2KXXIV" Selfie Chapter list Chapter List 00:00:00 - Intro 00:00:48 - Subscribe to get the selfie 00:01:20 - Young Albert Einstein vs. old Albert Einstein 00:03:32 - Hoppin Hot Sauce Jingle 00:03:51 - Hoppin Hot Sauce toasted pistachios recipe 00:06:11 - Shout outs 00:07:06 - Geographical shout outs 00:09:44 - A gross-sounding color scheme 00:10:51 - Alternative to the facial tattoo 00:11:45 - If I had an advertiser

    Arte Povera

    Play Episode Listen Later Jan 30, 2024 24:25 Transcription Available


    In "Arte Povera," Aaron "Wheelz" Fotheringham hits the skatepark in his WCMX wheelchair, we learn how to pronounce 'arte povera' and MS plays third wheel. Shout out Shout out to Jersey Girl who wrote in to let me know she was a diggin' on the new theme song @aaronwheelz WCMX GETTIN' RAD https://www.youtube.com/watch?v=YEXsDdhgX-s Aaron "Wheelz" Fotheringham WCMX disabled extreme wheelchair at the skate park. Watching his videos blew my mind and made me proud Arte Povera Selfie Put the selfie in and remind listeners to subscribe When was the height of the sound effects- do you remember the sound effects? Contact me and I will give you an incredible shoutout that warps time and space due to its epicness Famous Quotations: Edison & Rakim When you have explored all possibilities, remember this - you haven't. Thomas Edison https://www.youtube.com/watch?v=6Y1Emb7Jyks Don't sweat the technique Cats are big We can always make a social media profile for our pet cat. people love cats! Video art, eh? https://www.youtube.com/watch?v=PQddRHtt0Ts The video that comes up when you search "Arte povera pronunciation" is like a work in itself Door Update The ancient giant door of opportunity is wide open, with light shining through Stitches/Staple Update I don't have any stitches or staples in my head or anywhere else in my body at the time of this recording The stitches fell out in the shower. Just the end of them. They were brown Three's Company Everyone who is in a relationship with me is also in a relationship with multiple sclerosis, including my friends and family #1: Ask before you help United Spinal Association disability etiquette guide was a concise read that offers interesting perspective on how to treat disabled people respectfully Acceptance acceptance of gravity like acceptance last time - gravity is a constant force Time's up See you next week! Don't forget to contact me for a Shout Out in the next episode While you're there, subscribe to get new episode emails Chapter List 00:00:01 - Intro 00:00:46 - Shout outs 00:01:17 - disabled inspiration: Aaron Fotheringham WCMX rider 00:05:00 - selfie 00:05:28 - to get the full experience, you must subscribe to whats the matter with me? 00:05:39 - do you remember the sound effects? 00:06:24 - kid's baseball league debacles 00:08:23 - disabled inspiration: remembering pitcher Jim Abbott 00:09:12 - Quote: Thomas Edison 00:10:45 - Quote: Eric B. & Rakim 00:11:39 - People Love Cats 00:11:54 - arte povera Pronunciation Video 00:14:45 - Ancient Giant Door of Opportunity 00:15:34 - no stitches or staples 00:16:38 - Everyone who is in a relationship with me 00:19:09 - Disability Etiquette Guide 00:22:51 - Outro

    Ancient Cattle Herders

    Play Episode Listen Later Jan 23, 2024 26:36


    In "Ancient Cattle Herders," scientists solve a genetic mystery about multiple sclerosis, Christina Applegate goes on the Emmys, and we read about how acceptance is key. Caused by people with horses Surely a big deal with far-reaching implications Scientists crack mystery of how MS gene spread 10th January 2024, 08:09 PSTShare By Philippa RoxbyHealth reporter An international team of scientists say they have unearthed the answer in the DNA of ancient teeth and bones. The genes which protected our ancestors from animal diseases now raise the risk of multiple sclerosis (MS). The researchers call their discovery "a quantum leap" in understanding the evolution of the disease. And they say it could change opinions on what causes MS, and have an impact on the way it is treated. https://bbc.com/news/health-67917294 Surely a big deal with far-reaching implications, but I'm not 100% sure what they are. Something to do with ancient cattle herders, beasts and DNA helixes like you see above. Remember Reminder to put the selfie in and don't forget it like last time, remind listeners to subscribe ancient cattle herders selfie 90s are back: E-Mail I sent an “it's good to start the season” email Email is big bc the 90s are back Emmy TV Moment Christina Applegate on the Emmys was a huge moment that increased MS consciousness Having That Falling Feeling Inside Fell in the house Wednesday at 10:45am. my wife was here. I bled a little from one of the stitches, but didn't open up and stopped pretty quick when I iced it so I didn't go to the ER but I think this still counts as a fall If Christina Applegate did it, we would say, "she fell." If it's the last thing I ever do Fellow KFJC DJs reach out to me to take part in stuff, but I can barely make it around my house Moving to San Leandro added 9 minutes and a bridge to what had been a straight shot from east san jose I'm not walking very well I would be there if I could be I need to figure out my wheelchair transport situation Like a helicopter https://www.youtube.com/watch?v=0xdVXV8_yHE The wall blew off on that 737 Max 9 Come up off that We got permits for solar last year but we've kind of been dragging our feet with the sales people and this year they want to take our money and now I'm getting calls from the operations department Not a word No one agrees to publish my poetry and to an extent that shouldn't be a surprise Acceptance is key Blog post about disability and acceptance that I thought added valuable perspective to my situation @johnhoppin https://twitter.com/johnhoppin/status/1742292361139621970 Chapters 00:00:01 - Intro 00:01:11 - Hoppin Hot Sauce Jingle 00:01:25 - Ancient cattle herders brought MS genes 00:05:59 - Selfie 00:07:14 - “it's good to start a season” email 00:08:31 - Christina Applegate on the Emmys 00:14:29 - Fell in the house 00:15:34 - Stuck in the house 00:17:48 - The wall blew off on that 737 Max 9 00:18:58 - I'm getting calls from the operations department 00:20:13 - Poetry publication 00:20:52 - Accepting disability blog post 00:24:09 - twitter bon jovi 00:24:38 - Outro

    New Pie Cutter

    Play Episode Listen Later Jan 16, 2024 31:58 Transcription Available


    Welcome to the Season 8 Premiere, "New Pie Cutter" In this episode, "New Pie Cutter" which is a kind of smorgasbord episode, we celebrate the new year, the new season, the new theme song. People get ready, the new episode is here and ready for liftoff. Shout outs s Shout out to the sandman Contact me on the contact form to get a shout out Maybe the best shout out you'll ever have, or that anyone'll ever have New Pie Cutter To avoid a repeat of this year's thanksgiving gorefest, I ordered a metal pie cutter on ebay, with a stainless steel blade and a silver handle - it's here and it's beautiful and sturdy Dinner a la GoGo GoGo has limitations as a dating service an awkward seating arrangement at least they got a name change TV burial bought a big new tv bc mine crapped out after 15 years What's causing it Dad butt dialed me again and he was like well. what happens is,I keep my phone in my back pocket, i think i butt dialed you Maxims I will try to eat cheese no matter how old it is just to see A pint is a pound the world around Correct Technique correct and incorrect swallowing techniques Swallow while staring at your sternum I learned it from Koko Wheelchair Fake News With my son parts on my wheelchair broke in airline baggage "jazzy passport is discontinued" and other lies the wheelchair salesman told me Notes making memes yogurt marinade Mix 1 cup yogurt, 2 tsp Hoppin Hot Sauce, and 1.5 tsp salt Pour over 8 boneless chicken thighs and rest for at least four and up to twentyfour hours Grill and eat over rice with some white sauce and extra hot sauce to taste AI Guy I posted a picture of myself that was made by AI and I put it as my story and a lot of people haven't heard from in a long time contacted me and maybe didn't realize the picture was not of me but it was a hallucination by AI Admission the triage nurse at the hospital asked me if i used to be a wrestler Chapters 00:02:37 - shoutouts 00:03:02 - I ordered a metal pie cutter on ebay 00:04:43 - GoGo has limitations as a dating service 00:07:55 - bought a tv bc mine crapped out after 15 yr 00:09:33 - Dad butt dialed me again and he was like well. what happens is,I keep my phone in my back pocket, i think i butt dialed you 00:10:01 - I will try to eat cheese no matter how old it is just to see 00:10:25 - A pint is a pound the world around 00:12:38 - Swallowing while staring at your sternum 00:15:53 - parts on my wheelchair broke in airline baggage 00:21:22 - jazzy passport is discontinued (and other lies the salesman told me) 00:21:58 - maxims 00:22:19 - Hoppin Hot Sauce Jingle 00:22:28 - cooking yogurt chicken (with recipe) 00:23:27 - I posted a picture of myself that was made by AI 00:24:35 - i've been bleeding all from my head 00:25:43 - the triage nurse at the hospital asked me if i used to be a wrestler 00:28:57 - pus head experience / pus head the artist

    Can You Eat Blood?

    Play Episode Listen Later Dec 6, 2023 42:44 Transcription Available


    Welcome to "Can You Eat Blood?" the first episode after a break for a few weeks. I had trigeminal neuralgia face pain, so I took a a couple of weeks off. I think AI would say that these are bunch of unrelated thoughts. Shout-outs Shout out to the poet Joe Imwalle who called me to thank me for sending a link to his linktree while at the same time insinuating (correctly or not) that almost no one listens to my podcast. Joe played guitar in my high school band and now he's a published poet Shout out to Jeremiah Jahnson who gave us a shout out on KFJC, Saturday morning at 8:30 Shoutout to Hoppin Hot Sauce Gray room We went on a date at Yonsei Handrolls because the movie was too long to do otherwise What To Do When you have MS people are alwaays sending you scholarly articles like this one Caramelized shallots Chicken and pasta with caramelized shallots Thanksgiving Thanksgiving is for 14 this year Thanksgiving menu 5% salt I wrote the sauerkraut recipe for the school recipe book I can breathe again The espresso machine is back No Swap We're taking a break from the Booze-Only Yankee Swap this year Face on the fritz My face is bothering me due to the storms in the atmosphere Unfortunately I couldn't eat dinner with my family I had a scrambled egg on some rice so it's not like I'm dying Turkey Brain A week away and the Thanksgiving meal took over my mind I hope that I will be in the clear and so I can enjoy eating the meal and not be in fear I'm put in the meat order after trying to put it in back in October and they were like, "We'll do it next week." I'm either super early or coming in in the nick of time Cool hipster shoes The guy at the mobility shoe store asked me what kind of shoes I want and I said I was a hipster and I was cool and he said so you want dress shoes? Too Much Blood Jan hasn't been able to smell anything since he was 18 Nami drank Jan's blood But at least she didn't drink her piss Rejection Uniform Rejection of All writing submissions Disability studies Disability major at UCLA, first at a CA public university Mysterious note "Not just the bad stuff but the stuff I thought was really good" Washed up In a discussion of popular music John John told us Lady Gaga is washed up

    God Of Thunder

    Play Episode Listen Later Nov 7, 2023 34:02 Transcription Available


    Welcome to What's The Matter With Me? Podcast Season 7. Episode 31, "God Of Thunder" The provided text seems to be a collection of various unrelated topics and updates, including shoutouts, a fundraiser for KFJC, an art acquisition by SFMOMA, the outcome of a baseball game, discussions about tucking in a t-shirt, an exploration of self-sufficiency, cooking, and conversations about toxic behavior with your son. ChatGPT Shout Outs Shoutouts to Rocky who dug the face tattoo idea Remember to use the drawer. Repeat: do not get a face tattoo, just a drawer full of scraps of paper with tattoo ideas written on them Shouts out to Max Level, standing at the edge of an inky black ocean holding a torch aloft Fundraiser is done 2023 KFJC Artist Shirt by Abigail Mae The KFJC fundraiser wrapped up bc we raised our operating budget for the coming year I donated to fundraiser @ KFJC and got the artist shirt (pictured above) Outsider Granted Entry JOSEPH ALEF, UNTITLED (JA 072), 2018, WORK ON PAPER, 22 X 30 INCHES via Creative Growth “SFMOMA's investment marks a historic milestone in the contemporary art world,” said Ginger Shulick Porcella, Executive Director at Creative Growth Art Center. “It has been far too long that art institutions have ignored or underrecognized artists with disabilities. These talented creators can no longer be relegated to the category of ‘outsider artists' as they firmly occupy the walls of museums worldwide.” SFMOMA SF MoMA makes histric acquisition of works from Creaative Growth/Creativity Explored/NIAD artists Rangers In 5 https://www.youtube.com/watch?v=lVbOQzgQKNk Diamondbacks lost the world series in five games to the Rangers As promised, I now have an Adolis Garcia Rangers jersey on order for my son Locked In With Deepak https://twitter.com/DeepakChopra/status/1704637821493919867 https://twitter.com/johnhoppin/status/1704637997222920243 Art School Job Prospects The person who named cymbals had a really cool job Do you think the hiring manager had other well qualified candidates? Keep your shoes on Tucking in a t-shirt in doesn't make it look any more formal If you are in my family, it makes you look like a pumpkin who thinks that a tucked in t-shirt is appropriate to wear to an event that it clearly is not Otherwise, you wouldn't tuck it in your silly t-shirt. Everybody needs directions Even Jesus Christ was not perfect God of Thunder I was the drummer from Def Leppard for Halloween Tight reviews: one reviewer was 5'9" 230 lbs "pretty sure my junk was showing" The tights fit, and I don't think my junk was showing Exploration in Self-sufficiency I took the kids to school by myself, picked them up, fed them, bath, and bedtime So my wife could go to San Diego on a work trip Green sauce for steak and vegetables What we're cooking now: grilled skirt steak with new potatoes & the real chimichurri Get every last drop https://www.youtube.com/watch?v=FBtu3zhSD40&t=3s Judy woodruff & Dan Doctoroff on PBS Newshour Disability Reframed segment about squeezing every last bit out of life https://www.youtube.com/watch?v=rXZUV2pX584 Washington Phillips on Dust-to-Digital Toxic messaging Talking to my son about the imagined bullies in middle school Trying to introduce the concept that making fun of a adisabled person is a toxic behavior, and as he gets older it's going to be important to see that clearly I am not at all sure that will help him

    What’s Really Going On

    Play Episode Listen Later Oct 21, 2023 24:56 Transcription Available


    In "What's Really Going On", John discusses the challenges he's been facing with his children, particularly their lack of cooperation He shares the stress and difficulty he experiences in trying to handle this situation, about the frustration of dealing with his son's behavior and the impact it has on their daily routines. He expresses his hope for a resolution and mentions that it's the 30th episode of his podcast this year. The episode discusses various topics, including John's family life, his children's behavior, his creative work with Hoppin Hot Sauce, and his experiences at a drum and bass show. Forming a rock band What I meant when I said that the fans of What's The Matter With Me? Podcast could change the course of history is that there's enough of them to form a rock band Coffee Annual Deep Cleaning We took the coffee machine in to get serviced Pile of Sticks All of my walking sticks are bent or otherwise unusable and I have them in a pile in the corner. I called in the warranty for one of them, and the replacement will come on Monday. Drum and bass I went to the drum and bass show at the Golden Gate Park Bandshell in my wheelchair Submission Kind of a milestone: I submitted poetry to ten publications. It's probably just the beginning. Hot Sauce Check Out Hoppin Hot Sauce On Amazon Making a new production of Hoppin Hot Sauce, getting everything ready What's really going on My son is driving me wild, and my daughter is watching and learning John discusses the challenges he's been facing with his children, their lack of cooperation in doing homework. He shares the stress and difficulty he experiences in trying to handle this situation, and the frustration of dealing with their behavior and the impact it has on their daily routines. He expresses his hope for resolution and a good night's sleep.

    drum really going on hoppin hot sauce
    Multifaceted Discourse

    Play Episode Listen Later Oct 12, 2023 32:24 Transcription Available


    In "Multifaceted Discourse" John discusses various topics and gives shout-outs. Here's a summary of the episode: The humorous and diverse "Multifaceted Discourse" delves into a smorgasbord of subjects, with the usual touch of self-deprecating charm. Being a jazz vocalist is a real thing We saw Kurt Elling & Charlie Hunter at Yoshi's, where they always have a great accessible seating setup It was cool to see a jazz vocalist headliner; they scat on every song Bow Down John dishes out shout-outs, paying homage to a variety of individuals, and even reflects on reaching a milestone 201st episode. Shout out to slartibartfast who loves the production Shout out to Jersey girl, who ideated the blind musicians kfjc special Shout out to Nathan Mary tibby & butters who wrote in to Let me know, this is my 201st episode Shout out to the sandman who said "it's good and reassuring that AI cannot describe your show. Your show is about a specific human experience. I am glad that AI does not understand that yet, it means we still have time" Onus Removed? This could be a moment to rethink the A.D.A.'s framework. The Justice Department could take a larger role in enforcing the law, and Congress could amend the statute to give businesses a window to correct violations. Evelyn Clark We nearly take a thought-provoking turn reading The New York Times' article, "It's Time to Rethink the Americans With Disabilities Act," shedding light on disability-related discussions. Always Protect Yourself A viewing of the film "Million Dollar Baby"; delving into thoughts on body limitations and the pursuit of perfection. As Lennard Davis himself has written, "what is universal in life, if there are universals, is the experience of the limitations of the body". Yet in films like Million Dollar Baby, and seemingly in every other ideological corner, we confront what Davis calls a "fantasy…of the perfection of the body and its activities". We cannot step into this ring alone. Jay Dolmage &William DeGenaro, Ph.D. Submission The episode then takes a poetic turn, inspired by Joe Imwalle. I've submitted my poetry around to some places and that's a lot of fun and disheartening, but I'm more having fun with it. Still need a lift Wheelchair lift issues are ongoing. Book Rundown Book reviews include "2021 Best Sports Writing" anthology, Brandon Taylor's "The Late Americans" and "Biography of a Phantom" by Mack McCormick. Letting AI sum up "Multifaceted Discourse" is a delightful blend of humor, insight, and intrigue.

    A Range Of Subjects

    Play Episode Listen Later Oct 3, 2023 29:57 Transcription Available


    A Range Of Subjects We're paid through the year In this podcast episode, John shares personal anecdotes, music interests, and his challenges due to multiple sclerosis. He discusses social experiences, urban planning, wheelchair tennis, and efforts to improve mobility. The episode offers insights into his life and diverse interests. My wife reminded me of the time I got nervous with her family and I said that jujubees give you "copious fecal matter" Music Rundown New adds: https://www.youtube.com/watch?v=iAI_0ncyo3M Gabor szabo bacchanal - 1969 psychedelic apocalypse world music guitar centric  Dad gave it to me https://www.youtube.com/playlist?list=OLAK5uy_nZEvJap1jZ-Qr4n3iN6JyTHzJDIVcZerM Zum Vol 1 & 5: indie experimental playlist from George Chen https://www.youtube.com/watch?v=Ejrhm5hVzMY sick thoughts on total punk records This got me into the KBD scene - here is the Wikipedia page https://www.youtube.com/watch?v=xSKR5Rpru7Q from The Odd Man Who Sings About Poop, Puke and Pee Tremor Control I'm deep diving into olivia tremor control https://www.youtube.com/watch?v=1yFaHBPOLJI Will Cullen Hart has MS The collected works book, mostly olivia tremor control covers and related ephemera 'Jazz' alone will do Renaming jazz CD genres into just jazz from contemporary jazz, jazz fusion, hard bop, or whatever Not always social Being social is hard bc its hard to be social Baby's in the corner I went to my Mom's birthday and everyone stood around and it wasn't the right place to hang out I got out of there and went to a table in the corner of the room The party was crowded but nobody sat next to me and I received people like the pope. trying hard to recognize them after not seeing them for many years. It was ok. I chose a seat that was very close to the stage. 2.5 Ft/Sec Read a piece in the times about urban planning for senior citizens Stir Crazy hard to get a round trying not to go nuts Burning Man attendees got to go home, when will I get to leave Wheelchair Tennis Watched the wheelchair us open tennis, Spaargaren NED v Fernandez ARG Liberation CALLED the mobility people TO GET THE LIFT GOING We set an installation date for October 10 Choking on food Had one of John's friends for dinner and they ate seconds and thirds, then everything was gone and it was gratifying. Ground beef tomato pasta Then I coughed on some Watermelon covered with tajin. "This is normal", John told his friend. I guess it is. I felt bad for him. AI Cooking School AI Hoppin Hot Sauce food photographs are impressively strange Challenging Juju 1919 market warehouse party spot is still for sale 20 years later For the nth time

    Stream Of Consciousness Narrative

    Play Episode Listen Later Sep 5, 2023 31:28 Transcription Available


    Potty Mouth DJ Delving deeper into what AI says I already do, I present to you, "Stream Of Consciousness Narrative." The "What's The Matter With Me?" podcast is a stream-of-consciousness narrative where the host, John, shares updates and thoughts on various topics that are currently on his mind. In this episode, John talks about a range of subjects, including his recent visit to urgent care, his experience with physical limitations due to multiple sclerosis, and his creative work on fundraising ads for a local radio station. He also mentions listening to the "Iowa's Newsworthy Past" podcast, gives a shoutout to his friend George Chen, who runs a music distribution platform, and reflects on the nature of his podcast as a support mechanism. Throughout the episode, John's narrative style is reflective and personal, touching on both humorous and serious topics. Artificial intelligence I like that, "reflective and personal." I'm starting to think that AI really gets me. Enough claptrap, let's dive right in. Is it a population thing Oklahoma and North Dakota have the fewest listeners to this podcast. California and New York have the most. Quit/Nah I am thinking about ending the podcast, what do you think? Use the contact form on whatsthematterwithme.org. Scratch that, if things seem bad, I'm going to think they're worse. I'll take no action. Funky Worm https://www.youtube.com/watch?v=_A-GEBF4fTU From Beyond The Grave Listening to the Kurt Vonnegut interview cd from the back of my wife's old crashed car, he discusses how making a play is like getting yourself a new family. Listening to it, I felt that it related to how volunteering at KFJC provided support at a time when I had changed my lifestyle. I had moved from Brooklyn, to East San Jose, and I was looking for a new scene. Thee Song Candidate Shout out to Rocky who wrote in saying she dug the new theme song candidate from last episode, "Goru." I admit that it was heavily influenced by if not completely derivative of The Body & OAA, but maybe that isn't a bad thing. In Between The Lines Of Age Having my doctors tell me that my leg is useless or that my hand is paralyzed reminds me of when my kids used to say, "You can't use your hand", and then I would put a piece of paper in it. And say, "what about this?" Listening without intention Iowa's Newsworthy Past is a podcast with about 200 episodes consisting of readings from pretty old Iowa newspapers. You can listen to it really hard or you can zone out and let time and space melt away. Acquiring Legitimacy George Chen's Zum Audio Vol 5 compilation was on bandcamp radio last week and that's a pretty big deal even for an accomplished polymath gadfly like George.

    Last day of summer at the Jelly Belly factory

    Play Episode Listen Later Aug 23, 2023 39:02 Transcription Available


    Welcome to "Last day of summer at the Jelly Belly factory" on What's The Matter With Me? Podcast. I asked my artificial intelligence tool what this episode was about, and it summarized it thusly: The main idea of this episode is a stream of consciousness narrative where you share updates on various topics, including your experiences visiting a Jelly Belly factory, your interest in music, your thoughts on different sayings and maxims, an accident where you hit your head and had to get staples, and some personal reflections and anecdotes. The passage covers a range of topics and thoughts that are currently on your mind. Without further ado... Reggae bible study Have you been studying your reggae bible? I haven't, but on Dj Robert Rankin's Solid Foundation reggae show I heard the lyric, "The race is not for the swift, but who can endure." I googled it, and it's from the Bible, a riff on Ecclesiastes chapter 9, verse 11. The race is not to the swift, nor the battle to the strong, neither yet bread to the wise, nor yet riches to men of understanding, nor yet favour to men of skill; but time and chance happeneth to them all. Ecclesiastes 9.11 This could relate to people in wheelchairs, who aren't very fast, but who have the strength to endure what is happening to them. Hotter than rats in a sack The family went to Fairfield and Suisun City for the kids' last day of summer break. It was 98 degrees in Fairfield, but the Jelly Belly factory was climate-controlled. Afterwards, we went to Retroactive Records and Games in Suisun City. More Maxims Mean what you say and say what you mean.Those who say don't know, and those who know don't say.Smile now, cry later. Pile it up high They put me on a medication that causes drowsiness and I'm like add it to the pile. Thankfuilly, that was last week and now I'm off it. Meanwhile, I am working on reordering the shoes in my correct size, but its not exactly going smoothly. To top it off, my AFO brace is still broken and tough to walk in. Trying to get up, I fell and hit my head and cut myself. After some cajoling, I went to the ER and got four staples. I admit that I'm glad I did. Next week, I'll go in to the office and get them removed. New music adds Looking over the list, I can see that this week's music run-down is guaranteed to freak out the squares. Nine Inch Nails do soundtracks, Portishead stepped on a Lego, Gravy Train go up-market, and extreme hardcore vocal interplay - this week's music adds have a little bit of something for everybody. Don't let your life go silent. Teenage Mutant Ninja Turtles: Mutant Mayhem (Original Score) by Trent Reznor & Atticus Ross Enemy of Love by The Body & OAA No Jack Swing by Brontez Purnell CHOKE! SPLIT by XGRIFOX This Week's Selfie

    Iron Curtain

    Play Episode Listen Later Aug 14, 2023 31:15 Transcription Available


    Welcome to "Iron Curtain," a trip behind the enemy lines of the mind, contrasting the styles of my current dentist, The Cat, with my last dentist, The Iron Curtain. Peel back the layers of flayed gum tissue and see! Caught in the act https://www.youtube.com/watch?v=qPCmU9vPZyc Retired cop caught some people driving around. He subtly got their name and address and he's still taking their statement Shoe Fail I bought Billy shoes and they were too small - got to exchange New Kind Of Animal Got my teeth cleaned where they do it like cats instead of like the iron curtain. I wonder if she ever wanted to quit being a dentist in the states and move back to Ukraine and do her iron curtain work on Russian soldiers Live Ukrainian Death Match Accidentally head-butted the wall in the garage - abrasion. Fell on my stomach. Sinkrippers We got the pedestal sink in the bathroom anchored to the wall with a a piece of wood and my friend complimented me that my house looked nice My kingdom for a tube Popped my tire, and instead of getting a replacement, I got a new wheelset. I got solid wheels for my wheelchair at the medical supply store, where they said nobody uses tubes anymore. A Rare Success Last night for dinner grilled a 2# Rib steak, onions, cabernet - it came out as even a rare that I have ever cooked.

    Security Shirt

    Play Episode Listen Later Aug 7, 2023 29:06 Transcription Available


    Video podcasting In "Security Shirt," I'm experimenting with creating a video version of this podcast. With video, it's proof. I'm going to focus on trying to make movies, then seeing if I can integrate them into the podcast Shout outs Shout outs to Wylie Shout outs to the Sandman who wrote Jack Tar & I about a live Buddy Guy concert on TV yesterday Reframing Thinking back to "Hit My Head On The Bed," maybe I should get a bed frame with posts or other hardware on the bottom so I can hang on to that - because there isn't anything to grab on to at the lower end of the bed. Sao Ichikawa wins Akutagawa Prize Sao Ichikawa, the winner of the Akutagawa Prize, speaks at a news conference in Tokyo on July 19. (Takuya Isayama) “I wrote this novel thinking that it is a problem that there were few authors with disabilities,” she said. “I want everyone to think about why the first winner did not appear until 2023.” Security Shirt Movie https://www.youtube.com/watch?v=4MbvV8EkB1g Security Shirt story - "a man is blocking the stairwell" AFO drama My AFO brace has come unglued again I'm falling a lot, getting bruises, and taking lots of ibuprofen Thor Raining Down Lightning Trigeminal neuralgia was like lightning coming through the clouds. The clouds came from the carbamazepam and gabapentin I was on at the time. But then the lightning of trigeminal neuralgia in electrical nerve disease was like being in an area where there are lightning storms. The lightning is pretty unpredictable and there are mostly clouds, but once in a while the lightning strikes or there can be a lightning storm that breaks out and there are many, many electrical strikes. It causes a lot of anxiety because of how unpredictable it is. And having gone through many many of those lightning storms, I am kind of traumatized. I am on the same medication today and under more or less the same clouds. But there is no lightning when there is any feeling at all it is very muted. But like I said I'm traumatized. I'm anxious and I'm fearful. I have to recognize that https://twitter.com/johnhoppin/status/1686781634555850752 Easier dressing Relaxed fit clothes fit my AFO easier but they are going top be a change for my wardrobe From the Corrections Desk Correction from my wife. We didn't use carvana that we use CarMax. The same one we use the last time Smoke Signals Burping after eating Taco Bell vegetables tastes like cigarettes I was about to tell this lady at National Mobility and Seating right when the guy told me I was at the wrong place and he was behind the window at first so I didn't see him My wife was relieved On The Beat I saw Kerry in the park at 8:30 a.m. trying to do what he can for as long as he can Frank Fat's I want to go to Sacramento for classic cocktails and chow mein Revenge Against All Odds Crippled Masters. One with no legs, the other no arms. Disabled self-representation in a martial arts film. An avant garde film. Ended with no falling action This Week's Selfie With my wheelchair

    Trying to make this work

    Play Episode Listen Later Aug 1, 2023 1:52 Transcription Available


    Video Podcast Experiment https://youtu.be/PBS98l7BzOo I guess I'm just trying to make this work yo! I made a video podcast of the What's The Matter With Me? Podcast. This isn't a full episode of my podcast, rather a test to see how it works. I have wanted to do this for a while and I just figured it out here and now. I think I'll keep at this, so stay tuned.

    Hit My Head On The Bed

    Play Episode Listen Later Jul 27, 2023 29:13 Transcription Available


    Welcome to “Hit My Head On The Bed”, an episode unlike any other about unwelcome interactions with a solid bedframe, children's birthdays, and walking the beat. PLUS a new theme song candidate faster than any others. Frame Very Solid I fell and hit my head on the wood bedframe Child's Birthday It's my sons birthday tomorrow On the weekend, he is going with a few friends to see the new Mission Impossible Movie Theater Bars, Part One I bet they make whiskey sours with Jim Beam White Label at the bar Just In Time Hit the corner on my current phone and then it starts transcribing what is said and it does a pretty good job I am figuring out the accessibility controls on my phone just as I am about to change to a new phone I am an environmentalist so i throw away my trash Technology has too many layers of microphones By the time I figure out how it works, I need a new phone Bike shop we went to the bike store in the neighborhood and got my son a bike we live next to the ride around the lake the shop makes custom road bikes that are too nice for a ten year old Lost Focus Getting ready, I didn't stay focused - the kids were fighting - and I didn't stick the landing and fell getting ready I hit my head on the wooden bed frame I need to get help when I'm trying to get out of the house, but maybe it's unrealistic to expect it Walking The Beat My neighbor is a retired police officer He walks a lot and has a a loud voice According to the bike mechanic, we live in the "forgotten zone" He walks the beat all the time and he knows everything that's happening Down At The Heel My shoes are trashed I'm looking at billyfootwear.com which is made for people who wear AFO braces I need help figuring out the sizing because the AFO affects what size I am My current shoes are ugly and decrepit The soles are cracked and the uppers have a condition resembling alopecia Wheelchairiots Of Fire My phone misheard my wheel chair as a wheelchariot and I thought that was pretty rich Good thing I'm not having to fight for my life in ancient Rome Opening Time what time do they start serving whiskey sours at the movie theater bar Sun Jam NEW Theme Song Candidate "Sun Jam" maybe the fastest theme song candidate ever This Week's Selfie Hit My Head On The Bed Selfie Remember, the selfie is only available to those who subscribe

    New Van

    Play Episode Listen Later Jul 21, 2023 27:45 Transcription Available


    Welcome to "New Van" on the What's The Matter With Me? Podcast In this episode, I get a new van that accommodates a chair lift, host a friend from out of town, and start to plan the heavy metal concert at my burial. News Smash News flash news smash breaking news update chyron Hoppin Hot Sauce is for sale on Amazon Shout outs Sand Man's idea Shout out to Rocky and the Sand Man Burial Music Terrible Cemetery A terrible cemetery would have no benches Metal changes tempo You can only slam dance to it The dancing people stay away You can't dance to it Nami replied, "and maybe that's the point." A metal thing to say No Police Escort little league baseball season was a disaster The police escort didn't show up and the parade was canceled In the middle the A's decided to move to Vegas Visitor Buddy came from out of town New van New car smell They picked up the old van for donation We purchased a 2020 Toyota Sienna. Its coming on Saturday Pick Me Up https://www.youtube.com/watch?v=LO50hC5WgYc AL6000 Finally, we are going to get a wheelchair lift in the trunk. I am trying not to get too excited On The Contrary Admittedly, I can be a contrarian, so when KFJC got a little too carried away playing an all-vinyl marathon that extended to almost a week, I proposed an all compact-disc marathon, called The Plastication. This week's selfie: New Van selfie

    toyota sienna kfjc hoppin hot sauce
    Chew On That

    Play Episode Listen Later Jul 14, 2023 27:53 Transcription Available


    Welcome to "Chew On That", an episode about new music, barbecues, and the cultural differences between cafes and diners Best Sauce Check it out: Hoppin Hot Sauce is on Amazon News flash:It's the best sauce In the world SHOP Big Up Listener Shoutouts to Rocky Shout outs to the people who listen to every episode Boom Roasted We needed to order another Filter for the ice Maker and bang i did it Trip to the Cathedral Right around the corner This is a podcast about nothing because i'm from the Seinfeld era Ritual Hazing Absent Father I had Dad drink cucumber skin juice He grimaced. and we laughed and pointed at him First Detroit Based Art Gallery And Studio For Disabled Artists Progressive Art Studio Collective (PASC), a program of Services to Enhance Potential,  is seeking funding to complete the build out of our future Detroit Gallery and Studio in LANTERN. If PASC raises $50,000 by August 5, we will win a matching grant through MEDC's Public Spaces Community Places initiative. SUPPORT https://vimeo.com/840505686 Sausages On Display We hosted BBQs on July 4th & 5th I'm an extrovert and my wife is an introvert For the 4th we had sausages and ssteak On the fifth, we ate hamburgers MUSIC RUNDOWN https://www.youtube.com/watch?v=LCaD6GAQmjA Sonny Rollins & Leonard Cohen https://www.youtube.com/watch?v=Oou1_mWFtig Ghast "O Akhea Rheon" https://www.youtube.com/watch?v=qFM2yBy6GUA Kids are into this Purchased the catalogue $0.15/release Constellation Tatsu all for $20 This Week's Selfie Chew on that selfie GET THE SELFIE Every time we release an episode Sign up S

    Air Time

    Play Episode Listen Later Jun 29, 2023 28:23 Transcription Available


    Welcome to “Air Time” on the What's The Matter With Me? Podcast Across the street they had that place with Coffee & Tea, remember that? It was coffee with a black tea bag in it. Best Sauce In The World Shout outs to the best sauce in the world Hoppin Hot Sauce is a movement you need to get in tune with Stay For The Selfies Surf it on over to Subscribe page and never miss an episode Makes No Sense: Is the plural of selfie also selfie? Air Time KFJC radio is an outlet for neurodiverse people and people with speaking differences and it has been that way for a long time Shout outs to the people who download every episode Watching the Special Olympics Opening Ceremony on ESPN Disabled people can be hard to organize I'm glad they got airtime New glasses Went to Costco and got new prescription & frames I made Chili with chile de arbol in it Good For Ex-New Yorkers NYC Storefronts by Joel Holland Paralyze my muscles I went To the doctor to get botox Botox is cosmetic but also relieves tension, llike spasticity caused by MS I was embarrassed by my parents too John was embarrassed to have me drop him at camp in my wheelchair Salad is healthy The internet thinks franks and beans are healthy Pox on our house Koko has Covid Sellout Rollins plays with the Rolling Stones, uncredited, on Tattoo You https://twitter.com/johnhoppin/status/1673738874651299840 Aidan Levy author of Saxophone Colossus followed me on twitter Don't know how I need to sell my car Early fall I've been falling a lot This week's selfie Hanging in there

    You’re Just Jealous

    Play Episode Listen Later Jun 16, 2023 29:56 Transcription Available


    Welcome to “You're Just Jealous” on the What's The Matter With Me? Podcast My glasses, my walking stick, my car, my phone: everything is breaking down. My buddy's offhand comment takes me back to a time when my defense was, "You're just jealous!" AI Is For The Birds Shout out to Ashika who lol'd with me at how lame AI is, thanks for tuning in Sandman and/or Uncle Dennis Shout outs to the Sandman Uncle Dennis, no not THAT Uncle Dennis also , why not, shout outs to THAT Uncle Dennis but also to the Sandman Uncle Dennis these are two different people Shout outs to all the cult members There's So Much Going Wrong I'm relying heavily on my family to function i got my glasses and my car back and have ordered a new walking stick My cane got adjusted too high. I think I did it when I was messing around with it- that made it very hard to walk. Then, I made it too low My old brace is giving me fits and I have to go back to the cobbler I went to get a new brace and it was a fiasco I have so much going wrong that it is hard to look past it The way he says it I ate a Wingstop chicken sandwich mango habanero and lemon pepper fries and it sucked Unknown Emotional Toll I fell 3 times on Monday. One time I asked John to help me sit up Reading the paper I bought a tablet to read the newspaper for $50 and it worked out Potty Mouth Actor Michael Rapaport Stereo Podcast On the schoolyard A buddy's offhand comment about only children took me back in time "You're just jealous" used to be my only defense "Who listens to you at that time of night?" - sorry Aunt Linda This Week's Selfie

    Disability and Obscenity

    Play Episode Listen Later Jun 2, 2023 28:43 Transcription Available


    Welcome to “Disability and Obscenity” on the What's The Matter With Me? Podcast Is disability obscene? Coverage of Michael J. Fox and Sen. Dianne Feinstein has me examining implicit connections between disability and obscenity. People with advanced degrees can stomach the summary Shout outs to Doctor Kathryn- she appreciates the summaries because they're quick to read Because she's a doctor and they only get 15 minutes to do everything Hah! Finding humor in adversity makes it easier Not Sick Anymore Temperature report 24 Hour Meth Rave Sonny Rollins met up with Sartre on his 1966 European tour When he came back to New York City he could often be found at the jazz loft on the fifth floor at 89 East Broadway The Emperor And The Caveman I grilled a boneless ribeye, it came out perfect and it was a relief to eat it without the kids, who eat in opposing styles that are less than ideal in different ways Navigating disability in public Roosevelt remained paralyzed from the waist down and relied on a wheelchair and leg braces for mobility, which he took efforts to conceal in public. From the Wikipedia entry "Paralytic illness of Franklin D. Roosevelt" Feinstein in a wheelchair - questioning the ageist and ableist aspects of the news coverage of Senator Feinstein Michael J Fox in "Still: A Michael J. Fox Movie" - "... his practice of putting an object in his left hand to mask its trembling." This Week's Selfie disability and obscenity selfie

    Five Nights of Sweating

    Play Episode Listen Later May 26, 2023 32:38 Transcription Available


    Welcome to “Five Nights of Sweating” on the What's The Matter With Me? Podcast A fever that doesn't seem to want to go away; new music around the house; some terrible food. Maybe we can make the time pass quicker if we go to a grind core festival. Is not wanted I've got a fever that kept coming back Word What's The Matter With Me? Podcast is sponsored by Hoppin Hot Sauce-- it's the best sauce in the world! hoppin hot sauce is on amazon so anyone can eat it with hash browns and and English muffin-egg sandwiches with or without cheese but definitely with Hoppin Hot Sauce Feeling feverish For the first 3 nights it was up around 102-103 F In addition to Tylenol, I started taking Advil as a fever reducer, then I woke up covered in sweat with a normal temperature Then the next day it would began again I had an epiphany to drink Gatorade Catching up with Sonny Sonny Rollins has got a mohawk, where i'm at in Saxophone Colossus At his shows, he came out with the cowboy hat, then he would take that off and had the mohawk underneath Burnin' Up I sweat through the sheets for the 4th night in a row Disgusting: I smelled like a case of unwashed grapefruit with a sour whiff of spoilage or maybe more than that As if someone left me in the back hall, not in the fridge. by the dumpster near some unnamed liquid. I need a clean up New Music New music rundown this week is pretty much from bandcamp bc that's the only place I have been able to access recently Fake Fruit Terry Jennings Nine Dog Dick Dhol Tasha Sound System On the fifth night I sweat through the bed on the fifth night and woke up drenched yet again Grim In frustration at not being able to cook for myself, I took the reins at dinner I ended up making fried gnocchi with spinach, Garlic, tomato, cream, a can of sardines It could have used acid like lemon juice or vinegar to offset the tinned fish. There was a lot of cream though It was terrible. the kids wouldn't eat it. I thought to myself, "It is making your nails stronger and increasing your hair's tensile ability" Made it through On the sixth night the fever evaporated and I woke up mostly dry Grind core for the whole family Gilman is hosting the Fast, Wierd and Freaky Festival this weekend It's all ages I might still be a little too tired plus John John is maybe not ready Maybe he's not even ready to hear the band lineup read aloud Dad Butt Dials Me Dad is butt dialing me again We watched John Voight & Jane Fonda in Coming Home This Week's Selfie After Five Nights Of Sweating

    Burnin’

    Play Episode Listen Later May 19, 2023 18:28 Transcription Available


    Welcome to “Burnin'” on the What's The Matter With Me? Podcast In this episode, I'm still recovering from my last rhizotomy procedure, managing to get to get new footwear, and get out to a show in my wheelchair Burn Victim Chemical Burns melt your flesh. I have 5 Burns about as big as a dime each. I am using Medihoney, and I was initially confused by the name They Look Like Sneakers Before After I got new shoes to wear when I'm on my wheelchair. For the past couple of years I've been using Minnetonka I'm switching to white Vans slip-ons Tiitration Blues I am scared that if I reduce medication that the pain will come back. But I need to reduce the medication so I can enjoy my life. William Parker's New Heart Trio I rode my wheelchair to see the bassist William Parker (71) at the chapel In the New Heart tTio with William Hooker (76) and Isaiah Collier (23) My buddy Joe was the driver Titration Blues, Pt. 2 I reduced my medication and the pain came back in the night Parting Shots I need a new butt cushion for my wheelchair My son is at home because he has Covid Max Headroom was a guy wearing a mask This week's selfie Burnin'

    Rolling Around The TL

    Play Episode Listen Later May 11, 2023 21:54 Transcription Available


    Welcome to “Rolling Around The TL” on the What's The Matter With Me? Podcast Lots of people use wheelchairs in San Francisco's Tenderloin district, a pretty rough area between Union Square and Civic Center Shout outs Shout outs to rocky she's listened to every episode Shout outs to the people listening through the past episodes Send me a n email via the contact form and I will give you a shout out that is quite possibly the best one you've ever received and the maybe best that you ever WILL receive Dad Butt Dad butt-dialed me again Travels by wheelchair Went to Christian McBride in my wheelchair at Yoshi's Also in my chair, I saw the Floresta Little League A's game RF Rhizotomy Number 2 Had trigeminal neuralgia face pain 5am Wednesday morning & had more drugs,, surgery one day away I had surgery and have been clear from major pain since then. But I am still on pain drugs. My nose has triggered some zaps but they are lesser in intensity than they had been, with the caveat I'm still on some medication I Can Go Down My AFO brace is broken and it's very hard to walk. I have to walk all on my heel, and if I put my weight on the outside of my foot or on the front Of my foot I can go down. Rolling Around The TL I went to the deerhoof show in my wheelchair Rolling in the TL, I saw a lot of wheelchairs, but mine was the only one that was electric We ate at Osha Thai which was accessible, a blast from the past, and sadly due for an upgrade We got into the car after midnite- Rock & Roll! I called ahead to the Great American to let them know I'd be coming in my chair, they reserved me a table behind a pillar against the wall. It had poor visibility, but decent sound I started focusing on the audience. Nowadays people wear their pants wider and hemmed higher This Week's Selfie Rolling Around The TL Selfie

    Poop Burrito

    Play Episode Listen Later Apr 28, 2023 25:49 Transcription Available


    Welcome to “Poop Burrito” on the What's The Matter With Me? Podcast The tortilla is fine. Maybe you can save the lettuce. In a poop burrito, you have to go through the layers. My trigeminal neuralgia pain came back and so this episode is a bit like a poop burrito. I was in the hospital last weekend, and they changed up my medications to get me out of pain. A couple of days ago I saw the surgeon and I'm going to have another rhizotomy next week. Big Shoutouts Shoutouts to Nathan. His message: "Just wanted to say congratulations. On April 28th the what's the matter with me Podcast will be 6 years old! Keep it up buddy. And Hoppin Hot Sauce is the best sauce in the world." I did one thing right You couldn't sing to March's theme song candidate Speaking the unspeakable You are not allowed to call yourself a Bohemian- It's not a thing you can call yourself. Lazy hippie is more like it Round and vacant The security check said, "Click all the pictures with a donut" but it seemed like some of them were bagels I Was That Guy When my family was in Japan, the kitten didn't come in one night. Then, I got in my wheelchair and rolled around calling for my cat. Inequality Of the remaining Beatles that are still alive, we have the best one and the worst one. JK *ducking*. Boil Water Warning No one takes Cam Likely's phone calls Smooth sounds I want to hear elevator music, and I walk out and my wife is playing some violin concerto Competition begins It's little league baseball season again and the game is a little more recognizable, pitchers are starting to pitch better, more towards the plate Sonny in Europe Its 1959, and Sonny Rollins is going to Europe. Back in the states, he's jamming with Bob Dorough & Mose Allison at the jazz loft. Then, he goes on sabbatical and climbs onto the Williamsburg bridge to practice without disturbances. Visual Rhyme Time The suction cup handle rhymes visually with the book page holder This Week's Selfie Poop Burrito Selfie

    A Pint Is A Pound

    Play Episode Listen Later Apr 13, 2023 29:19 Transcription Available


    Welcome to “A Pint Is A Pound” on the What's The Matter With Me? Podcast Saying A pint is a pound the world around Kids Are Gaslighting Me What my car smells like My kids say I smell like poisonous chemicals They say my car smells like vomit They are the only people to vomit in my car, and I used cleaner to clean it up, so this is gaslighting and I should threaten them with cancellation Know Your Cobbler I went to the cobbler again and the parking lot was full Ancestral Lands My family went off to Japan Getting The Most Of Zing's Spring Sale On the last day of their spring sale, I put in Zingerman's cheese order number 2, for parmigiano reggiano & gouda It's been a good spring with delicious cheese Reading About Disability At the Duke University press spring sale, I picked up some books on disability Life and times of Sonny Sonny Rollins has been released from jail, gone to Kentucky for the cure, joined Brown-Roach Inc., and recorded Tenor Madness March Theme Song Candidate Theme song candidate "Song V" The Scary Neighbor Fedex guy brought the wrong package, and it was for my neighbor across the street I opened it because I thought it was the new cheese So I loaded it into my wheelchair and went over there Birds of prey At the owl cafe Bachelor life Keeping the metal food bowl full of chicken sausage tomato pasta Watching the Warriors win important games and missing my family Travel Handle https://twitter.com/scorebecca/status/1641873119483682901?t=3jTiNzDjbfPCpNgBL73BSA&s=08 Suction cup grab bar seems to be missing the crucial element of stability, but on the other hand, it's a cool novelty item and it might even work a little bit ADA Grab Bars keep me from falling. but I'm not sure that a handle held on by suction would keep me up, so I probably wouldn't use it RIP Sakamoto RIP Japanese composer Ryuichi Sakamoto, he made pretty cool music for The Revenant along with myriad othter films, games, and projects Checkup Parents came over. Mom scooped the litter. Dave helped me go fill the propane tanks. We got a baguette and 2 cookies Endorsed By No One The thing about Orthodic Footwear is that it is not endorsed by anyone. Except doctors Walking Badly Tiger Woods walking badly at the Masters ESPN's Michael Wilbon said he didn't want to see Tiger moving this way, but I wonder how much that will matter to him This Week's Selfie The world around

    Multiplex and Talent Show

    Play Episode Listen Later Mar 21, 2023 27:05 Transcription Available


    Welcome to “Multiplex and Talent Show” on the What's The Matter With Me? Podcast This week, I used my wheelchair to go to the multiplex in Dublin and the talent show in the auditorium at my children's elementary school. The movie we saw was "Inside" with Willem Dafoe and the elementary school talent show had a few truly bizarre, fun memorable moments.. Using my wheelchair made it possible. Spicy Nut and Pretzel Mix Whipped up the David Lebovitz snack mix because our dinner guest brought an extra pie. I think you could say it was burnt, but it's still so addictive that it didn't matter - it all gets eaten every time Welcome in Shout out to Canada. I watched the Sharks lose to the Oilers last night so I gotta give a big Shout out. to Canada I heard the band Big Blood from South Portland, Maine on the radio during KFJC's Female Takeover a marathon of music created by female artists - shout out to cousin Jimmy https://www.youtube.com/watch?v=hDmrH488oS8 Big Blood The song I heard was "Reproduce and Get Dirty which is like a great summary of all living things. It has great slide guitar and a wonderful vocal melody that soars at times and is also more intimate other times Big Blood has a lot of free music {including the aforementioned track) on the Free Music Archive At the Multiplex I went to the Regal Hacienda Crossing Spaceport in Dublin. It is a multiplex at an outdoor mall Shout out to Anjela the hair-cutter who told me she went to movies there when she was in high school I went with Nami to the movie in my wheelchair. I like going to the multiplex in a wheelchair because multiplexes are big and huge and I don't know if I'd be able to make it otherwise We saw the movie Inside with William Defoe It's about an art burglar who gets trapped inside a smart house which more-or-less tortures him and features the destruction of millions of dollars worth of of art and furniture. Kids Got Talent I went to the children's talent show in my wheelchair, but beforehand i emailed ahead of time to ask if they would save a space for me, which was no problem. they saved a space for me at the front of the room and a really sweet girl wearing a tap outfit helped me to get settled There were great embarrassing song and dance routines, solo Hamilton, martial arts, gymnastic cartwheels I & II, Water Under The Bridge interpretive dances and SO much more. It was more interesting than I thought it would be. My son told me he had a crush on a girl who did a gymnastic routine. When his mom asked why, he said it was because she "ran really fast" "A pint is a pound the world around" https://twitter.com/deerhoof/status/1637952008039849984 Indie rockers weigh in Only one thing left subscribe to the whatsthematterwithme podcast and you'll get a very fancy nice email version of the podcast every time a new episode comes out its very handsome be sure to click subscribe right at the top of the page, just a name and your email is all we need to get goin and then youll always get the selfie This Week's Selfie In the studio

    Car Accident

    Play Episode Listen Later Mar 17, 2023 32:44 Transcription Available


    I got in a car accident where I got rear ended, wasn't injured and the insurers agreed that I was not at fault. This is a blender episode, with lots of little segments that all go in there. Blender Episode This episode contains lots of different segments, all going into the blender like fruit goes into the smoothie.. Stay tuned for lurid stories of rampaging young adults and their dangerous car accidents, but let's start our blender episode back in the 1990s at Jamba Juice. Juicy Tale Do you go to Jamba Juice? My first thought was that I went there in the nineties, and that I don't go there anymore. Kind of like Noah's Bagels, I feel like Jamba Juice belongs to the 90s the way Orange Julius belongs to the 80s But I go there all the time because like El Pollo Loco, you can trust it, if you don't trust anything, Jamba juice will feed me I get the peanut butter smoothie Jamba Juice was originally called juice club Began in San luis obispo in 1990 It was renamed in 1995. In 1995, founder Kirk Perron swapped out Juice Club for Jamba Juice, which is a play on the African word, jama, which means "to celebrate." Music & Culture Festival Like Carijama, the dormant Caribbean music and culture festival in Oakland's Mosswood Park Ended in violence every year 2001-4 after existing since 86 Making The Scends  I have been using lent as an excuse to go to the fried fish place in San Leandro on 14th street Scends Crate Digging Expedition  Visited Stacks Records, a used record store in Hayward Session In Paris Masahiko Togashi was a jazz drummer who sustained a spinal injury in 1970. After his injury, Togashi had a custom drum set adapted so he could play drums using only his hands At Stacks, I found a copy of 1979s Togashi / Cherry / Haden "Session in Paris - Song of Soil" with a picture of Togashi in his wheelchair on the back, something I haven't seen very often on a record, so I bought it right away. If you're looking for a copy, they're on Bandcamp Pole Cane Stick Got a new walking stick made of carbon fiber, the old one was aluminum. The weight difference is like picking up a twig vs. blade of grass Creative Destruction I was on vacation in Palm Springs, Calif., on Nov. 7, 2021, when I awoke with the cacophony of a dozen dial-up modems blaring inside my head. Confused and alarmed, I called out to a friend staying in the room next door and could hardly hear my own voice. When he responded, I heard almost nothing at all. The reason for my sudden hearing loss and the persistent ringing in my ears wasn't immediately obvious, to me or to the emergency room doctor who examined me that morning. I hadn't stood too close to the speaker at a concert or hit my head in some traumatic accident. I simply had gone to sleep with my hearing intact and, come morning, it was gone. My life since that day has been difficult to describe, though the words I return to most often are “disorienting” and “humbling.” I spent months shuffling from one medical specialist to the next for a battery of tests and treatments. I eventually started wearing hearing aids and learning American Sign Language. And, perhaps most challenging of all, I confronted a new identity — disabled — that often leaves me feeling vulnerable. At first, I also felt very alone. No one hands you a guidebook when one of the fundamental senses on which you innately rely is revoked without warning. Even the most attentive physicians are primed to focus on your physical symptoms, not the upheaval that a sudden impairment brings to your personal and professional life, nor the erosion it causes to your sense of self. Steven Overley, "I had decades to make peace with my sexuality. My disability is a different story." NY Times Subscriber-only newsletter (EXCERPT) Acquiring a disability feels like forced creative destruction Steven Ozerkey was guest writer for Frank Bruni's newsl...

    I Got My Teeth Back

    Play Episode Listen Later Mar 7, 2023 23:48 Transcription Available


    Welcome to “I Got My Teeth Back” on the What's The Matter With Me? Podcast I went to the dentist, and he attached some teeth to the posts the periodontist implanted in my jaw. It's been almost two years since I had buck teeth in my mouth, and it is a big change. I made a lot of squash soup, adapting the method for one hand, and I've included the recipe in this post. Shout outs Shout outs to Klaudhopper, who asked about Hoppin Hot Sauce stickers Shout outs to Tall John who called me up after I tweeted about not going to Japan https://twitter.com/johnhoppin/status/1632793064740880384 Teeth These are the images I gave to the lab that fabricated my new teeth when they asked for pictures of what my old teeth used to look like. I have buck teeth again! It's been 2 years since I had my Teeth Knocked Out Goes By Cam Scam Likely probably goes by Cam He calls everyone and no one takes his calls, on the answering machine he's like hey it's me, Cam- Cam Likely Brain Lesions & Disease Progression ‘Usual Suspect' Lesions Appear Not to Cause Most Severe Disability in Multiple Sclerosis Patients Slow I had infusion which is a really long slow injection Roasted Squash Soup Recipe by John Hoppin Roasting winter squashes face up concentrates flavor, and using convection during the roast increases tasty browning reactions. Using an immersion blender makes it easier to puree using only one hand. We eat leftovers for lunch with a grilled cheese sandwich and Hoppin Hot Sauce. Servings8 Servings Cooking Time75 minutes Ingredients 3lbs winter squash, cut in half, seeds taken out 4T unsalted butter Yellow onion, chopped 1/2 teaspoon nutmeg 1/2 teaspoon cinnamon 1/4 cup maple syrup salt and pepper, to taste 4 cups stock Instructions Preheat oven to 350 F {or 325 if using convection). Roast pumpkins until easily pierced with a fork, at least 1 hour. Let cool, then scoop out the flesh. Melt the butter in a large, heavy-bottomed pot over medium heat and once it is foamy, add the onion. Cook 5 minutes until soft. Stir nutmeg & cinnamon into the onions. When the smell permeates the room, add the stock. Add squash flesh, bring to a good simmer, stirring. Remove from heat. Leave to steam for a couple of minutes. Puree thoroughly with the immersion blender, using a stirring motion. Be extra-thorough to find any chunks of squash or onion that may be hiding under the surface.. It should be thick. I don't do any extra sieving, so I want to take my time and be sure it is well-pureed. Add maple syrup, and season to taste with salt and pepper. Sonny At Rikers Sonny Rollins got 1-3 years for having a gun. He was searched without cause. In 1952 he was at Riker's Island. He arranged hymns for a hip chaplain at the Protestant Mission House, and he was paroled September 11, 1952 Theme Song The theme song candidate for this month is less jazz & more industrial I am considering whether it might have lyrics, maybe it'll sing the intro part Tiny Tooth Wrench When they reattached them, the radio played Lionel Richie's 80-s smash hit "Hello". Neither the dentist nor his assistant knew the song. Turned out that the dentist was born in 1987. The dentist used a little mini Allen wrench to attach them to the bases. there was pressure, it made my eyes water I have teeth now, so I ate Ramen and spaghetti for the first time since my bridge broke and took my front teeth with it in August 2021 My Gumbo History Cousin Emily came over for gumbo on Saturday I made gumbo at the Rockridge Fish in Market Hall in 2003-4 Last night for dinner i made red sauce italian sausage with leeks This Week's Selfie I Got My Teeth Back

    Lotion

    Play Episode Listen Later Mar 1, 2023 7:32 Transcription Available


    Smooth Like Lotion Welcome to “Lotion” on the What's The Matter With Me? Podcast In this mini-episode, we check out a new candidate for the theme song for Season 8, a song called "Lotion", because it's a smooth song, smooth like lotion is. Kind of G-funk, smoothed out 90s thing. Maybe it will be the theme song for next season.

    Concert At Yoshi’s

    Play Episode Listen Later Feb 24, 2023 22:09 Transcription Available


    Stage Welcome to “Concert At Yoshi's” on the What's The Matter With Me? Podcast I went to see a jazz concert at Yoshi's in my wheelchair, and it was pretty easy, for a change. I made a lot of vegetarian bean chili ahead of a trip to the ranch, and the vegetarians approved of it. Shout outs  Shout outs to Claude Hopper who listened to Wheelchair Dining Experience and wrote in to laugh about the banana salad My mom told me that I should have complained about the restaurant experience, but I have worked in restaurants for a long time and I think that things can go wrong very easily, so I declined. Kind of a cop out. I was like it's not gonna make my experience any better to complain. Write me an email john@hoppinworld.com and I will give you a shout out, perhaps the best shout out you will ever have. What are you waiting for? Send me an email john@hoppinworld.com Mom reminded me how the meal was like a car crash and i couldn't look away because It was like I was driving and I crashed my car. Maybe I was like a passenger in a taxi where the driver got into a horrible accident and killed someone and was at fault I was not at fault but I experienced it. And I paid for it. Rest in peace to that dinner I'll complain next time. Ads R Cheesy It's still true that I've never had an advertisement on WTMWM?, but I was watching TV with my son and they had an advertisement for this nut company and I have to say that I order nuts and raisins a lot. they also sell cheese powder and I'm interested in that. so if the nuts people come calling, I might do it, for the cheese powder Eight Cans Of Beans I made a gallon and a half of bean chili, to bring to the ranch. it got good reviews from the vegetarians who ate it up. I wanted to see if making vegetarian chili from canned beans was possible, and it worked out. My buddy grilled some carne asada and onions, which mixed into the bean chili just right, lending good meaty flavor and satisfying some more primal urges. Dave Holland Trio At Yoshi's Dave Holland, bass. Kevin Eubanks, guitar. Eric Garland, drums. From jam band to nihilistic noise rock. Eubanks is a natural sideman and laughs at everything This jazz concert at Yoshi's was accessible in my wheelchair I just had to call in the afternoon to let them know I was coming that night, and they reserved a table for my wife and I They gave us a good table with a clear vantage point and we enjoyed the show. We were not off to the side, or around the corner. It was easy to get to my seat, and I had a clear path to the bathroom which was useful because i had two whiskey sours Spatula Debates Spatula appears in English for the first time in 1525, when it morphs from being a weapon to a utensil most commonly used at apothecaries. Today, it describes any cooking tool with a long handle and a thin flexible blade. Got this from some clickbait We got into a debate during the making of chili about spatulas: are they for smoothing things out, or flipping them. Turns out, there are a lot of different things that you could call a spatula Domestic Things We received the bed and the fridge The mattress is not a lumpy nightmare The fridge is keeping things cold, but well short of freezing I Drove Them I drove the kids to presidents week camp this morning bc my wife was in the office

    Wheelchair Dining Experience

    Play Episode Listen Later Feb 17, 2023 30:38 Transcription Available


    I went out for a wheelchair dining experience and it was a comedy/tragedy of errors Welcome to “Wheelchair Dining Experience” on the What's The Matter With Me? Podcast In this episode, I rolled out to eat with my wife for a wheelchair dining experience  and it was a comedy/tragedy of errors. It was supposed to be a fine dining restaurant but the experience fell short in a lot of ways. I'm so starved to get out that it didn't stop me from having a good time, but I don't think I will be back. Press https://twitter.com/MS_Focus/status/1626311090559655939 Mention from the MS Foundation The multiple sclerosis foundation tweeted about what's the matter with me Podcast- they are a loud voice in the community, and I feel very seen. Shout-Outs  Not Quite Twice My Age: Dad is celebrating his 75th birthday cruising the Bahamas Swing By: Chris Parachini is in Puerto Rico but he'll make it to CA someday. Tag > Slap World Chase Tag is vastly superior to Power Slap "fighting" Date Looms Large https://twitter.com/RachelHorne19/status/1623465866309296131 Does the date of MS diagnosis loom large? For me, the answer is probably a no, even though I haven't forgotten it. I just haven't given it much weight. Unprecedented and Unique Dinner Dinner experience in my wheelchair, it was a singular experience When companies/products/marketers have come to me asking to advertise on WTMWM? I have refused. Big Question I'm Always Asking How can fatigue and achievement coexist? Lent Friday fish from Scends: snapper, shrimp, fries, mac n cheese, coleslaw, corn bread hot sauce. The kids liked it. Sam Kinison Auto Parts Jingle https://www.youtube.com/watch?v=LGHyuRzrJ6Y I made the Sam Kinison auto parts jingle Bad Old Ideas https://twitter.com/johnhoppin/status/1624865507244658688 NYTimes: College professor suggest eugenics to deal with the problem of an aging society Pizza Problem Bluebird Pizzeria in San Leandro is the only bona fide pizza in town, but they're closed on Monday And they Sell out on Friday and Saturday nights, so you can't even get a take away order placed at 7 o'clock. Its a little place& lotsTogo- no delivery. Guess I'm just ranting about there Isn't enough pizza in mytown Just Chili-ing Im making vegetarian bean chili This Week's Selfie Chin Music

    White Elephant Sale

    Play Episode Listen Later Feb 8, 2023 26:32 Transcription Available


    Only Happens Once A Year Welcome to “White Elephant Sale” on the What's The Matter With Me? Podcast In this episode, I went to the annual White Elephant Sale in my wheelchair and thought about my identity, identity politics and representation. Fishy Yellow Mess Turmeric supplement broken bottle Nami said getting an apology from a chatbot is unsatisfying. She said it's because you don't feel magnanimous accepting the apology of a robot. Weird junk white elephant sale was accessible in my wheelchair. Some parts were very tight, but I made it work. That place is full of great junk Still toothless I thought I was gonna have my teeth, and I don't have my teeth (yet) Fluid Identity I have changed my identity and become a disabled person and in that way I understand something about intersectional identity There are People that change their identity on purpose. I feel some kinship with them because my identity has changed, even though I didn't do it on my own. Viewing others with unmarked male gaze is no longer possible I used to think that identity art was silly, because I questioned its relevance to art. My thinking about the importance of identity, identity art, and identity politics has grown and changed just as my identity has grown and changed through maturation and enduring chronic disability Mayhem Special Dax Pierson I'm dreaming up a Mayhem special for KFJC about disabled musicians. Something featuring disabled artists like Cedell Davis, Beethoven, Rahsaan Roland Kirk, Stevie Wonder, Blind Uncle Gaspard, Israel Vibration, Ian Drury, Dax Pierson, and more. This Week's Selfie White Elephant Sale Selfie

    Happy New Yeast

    Play Episode Listen Later Feb 1, 2023 30:53 Transcription Available


    Auto-correct keeps messing with me Welcome to “Happy New Yeast” on the What's The Matter With Me? Podcast In this episode, autocorrect keeps messing with me. After almost two years, I'll get new teeth on Friday. I drove myself to KFJC and did a lot of cooking. Buck Wild I lost my buck teeth in the Spring of 2021 and, at long last, I'm getting them back on Friday Live on KFJC I drove to KFJC and hung out with Jack tar during the Blues Collective and also picked up some records to review They had this year's new years card and a past new years card up in the lobby I got assigned a couple records to review and brought them home, fulfilling the original reason to be a member at kfjc: to get free records Misadventures In Autocorrect "Happy new yeast," my phone is always autocorrecting me, when I try to write happy new years. And I'm like "No, man- that makes me sound weird." Plastic Tones Cedell Davis Cedell Davis was a disabled blues man with limited use of his hands Doin' drop off and pickup I took the kids to school- Nami was working in San Diego, End of day pickup & took them out to Taco Bell, because they see the ads on TV Cooking While Disabled Jan 2023 Need a TED talk about making PBJ that addresses the importance of spreading the peanut butter and jelly to the edge of the bread Made mojo sauce, its hard for me bc it had some tricky things like using the microplane, blender & a lotta juicing i extended the marinating time to break out the work over 2 days Made soup again, the kale was a bit difficult to strip off the stems but i did it anyway bc it's good to do things within reason. Part of cooking is prep, and it's the work Artist at the Grocer I saw the artist Stephanie Syjuco at the grocery store. That was last week; this week she's at MSU, installing a new exhibition https://twitter.com/johnhoppin/status/1618749185481920515 Hold It Right There The Amazon page holder device- I can read again. It's called "Bookmark/Weight-Page Holder-Holds Books Open and in Place-Clear-by Superior Essentials" and it was Amazons choice. Using it is easy and I can read much easier without having to grapple with the book. Currently, I'm reading The Year's Best Sports Writing 2021 and Saxophone Colossus, Aidan Levy's new Sonny Rollins biography and the page holder is doing exactly what they said it would- a useful product.

    Gum Scrape

    Play Episode Listen Later Jan 25, 2023 29:57 Transcription Available


    Body Horror, Part Two Welcome to “Gum Scrape” on the What's The Matter With Me? Podcast In "Gum Scrape," I'm finally on the verge of completing my dental implants. I went to the dentist and he got after me with an X-acto knife. Tube-Tying I cut the cord in 2012 And now I have cable in 2023 and I don't ever want to be without live sports. Probably I don't really feel that way but my son does and my wife certainly disagrees rafa lost to mackenzie mcdonald rafa had rf procedure on his foot for nerve pain mcdonald trained at the Claremont Resort & Spa I used to sneak into the Claremont to employee dining room Sharks came back from a 3 Goal deficit for the 1st time since 2009 Periodontist is a 17th century job Dentist used x acto knife on my gums Easy Soup Cooking while disabled- easy white beans, kale and sausage soup, kinda like this one, but with sausage. Smoky from Goulart's choriço Take the deadly nightshade Modern love is a romantic comedy and my wife doesn't think it's funny My wife says opt for the deadly nightshade One-handed piano player I've been learning piano songs with one including soldier, Desperados waiting for a train, Blue Moon, & come back Kid

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