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What Fresh Hell: Laughing in the Face of Motherhood | Parenting Tips From Funny Moms
Why is it that our own vacations never look like the perfect, happy families on the posters enjoying their destination without a sunburn, meltdown, or lost bag in sight? Here's how to manage expectations while traveling with kids and enjoy your trip, whatever it ends up looking like! We share stories of Disney overwhelm, international travel wins and disasters, airport anxiety, and the unexpected moments that end up becoming the best parts of a vacation. Topics include: How age and stage affect what kind of travel works best Traveling with neurodivergent kids and accommodating different needs Helping anxious kids prepare for flights and unfamiliar places How to adjust plans when travel stress and meltdowns happen The moments kids remember most (hint: often not what you planned) Here are links to some of the resources mentioned in the episode: The Autism Community in Action blog: Traveling with Your Child with Autism TSA Cares program Bill Springer for Forbes Magazine: Kids Who Travel Do Better In School What Fresh Hell is co-hosted by Amy Wilson and Margaret Ables. We love the sponsors that make this show possible! You can always find all the special deals and codes for all our current sponsors on our website: https://www.whatfreshhellpodcast.com/p/promo-codes/ Learn more about your ad choices. Visit podcastchoices.com/adchoices
In November, there will be many Congressional seats open. Wouldn’t it be great if it was someone with firsthand knowledge of the experiences of autism families and understood what they were facing? In NJ, that is happening. Dr. Samuel Wang, autism researcher and autism sibling, is running for Congress. Today’s podcast interviews Dr. Wang, why he decided to run, what he will do when elected and what he hopes to accomplish as a Congressmember. You can read more about him at www.samfornj.org
Dr. Deb Muth 0:03What are the answers to your child’s chronic allergies, ADHD, or autism?weren’t just in another prescription, but in restoring balance to their body chemistry. Today’s guest has spent nearly two decades uncovering those answers through integrative and biomedical medicine. That’s a mouthful, isn’t it?Helping children heal when nothing else seemed to work.This is the conversation about science, compassion, and changing the future of pediatric care.Welcome back to Let’s Talk Wellness Now. The show where we uncover the root causes of chronic illness, explore regenerative breakthroughs, and empower you with the practical tools to heal. I’m your host, Dr. Deb, your medical detective, and today’s episode is one every patient should hear.My guest is Dr. Anu Usman Singh, Medical Director of True Health Medical Center in Naperville, Illinois, and the owner of Pure Compounding Pharmacy.And for over 17 years, she has been pioneering evidence-based integrative interventions for children with ADD, autism, allergies, and complex gastrointestinal and metabolic disorders. She’s not only a practicing physician, she’s a researcher who’s investigated copper-zinc imbalances.metallonine dysfunction, biofilm-related infections, vitamin D in pregnancy, and hyperbaric oxygen therapy.Dr. Usman serves on the executive board of TACA, and is a faculty member at MAPS, training other practitioners in pediatric integrative care. So get ready for a conversation that will open your mind and heart to the possibilities of when medicine truly becomes holistic.If you guys can insert the ad in here, that’d be great.Well, welcome back. I’m so excited to have Dr. Usman with me today. I have known her for, oh my gosh, 15, 17 years, something like that. We’re aging ourselves. Anju 02:32Oh, yeah, when we were in our 20s, right? Dr. Deb Muth 02:35Yes, exactly. So, welcome back, and I am so excited for you to be here, because you have literally helped thousands of families over the years.But I’d love for you to share a little bit about your journey, kind of who you are, what drew you into exploring integrative and biomedical approaches for helping children and families. Anju 02:58I think my journey is similar to a lot of you out there, the audience. I mean, we’re looking to help our families, and our kids, and ourselves, and I was doing my residency at Cook County Hospital, downtown Chicago, in the 80s.And I thought, oh my goodness, if I could take care of the sickest patients, then I can take care of anybody. So I came from Indiana, and I went to Cook County, and my children, my eldest daughter, started having, severe allergies and asthma, really, really at a young age.And I went to, like, my residence, and I went to my attendings, and I said, this baby is wheezing. And they told me, babies don’t have asthma.And I said, she has all the symptoms of asthma. She has asthma. And I remember with, in her crib, I would just nebulize her, you know, and I was like, what is going on?And I figured out that she had a lot of food allergies, and I was nursing her, eating the foods that she was allergic to, and back then, in the 80s, you know, we didn’t have the internet, we didn’t have Whole Foods, and I just…being a doctor, and I didn’t even know what to do, and I felt so hopeless. And I thought, gosh, you know, I’m a doctor, I have these, like, skills, I have… people I can talk to, and I still feel so… it’s so difficult. And then this… my particular daughter, the oldest one, her name is Priya, and she developed severe, asthma, and I couldn’t figure it out. She was in junior high. Every time she would walk into the lunchroom, she would have a severe asthma attack.And I’ll be like, what’s going on? What’s going on? I kept her home over the weekend, she was better. I sent her back to school, she was bad again.And we figured it out that it was other people eating peanuts. Dr. Deb Muth 04:54Severe peanut allergy. Anju 04:56And I went to the school, and I said, she…can you, like, put her somewhere else? Can… they said, oh, no, that’s not fair to other kids and their food. And this was in the 90s. Dr. Deb Muth 05:10Yeah. Anju 05:10And so, I just…You know, my heart goes out to families who are struggling to find answers for their kids, and my daughter Priya, the one I told you about, she ended up passing away from a peanut allergy.And so, I’ve just… Dr. Deb Muth 05:26Yeah. Anju 05:27My heart goes out to parents and my own kids and their illnesses.And so I just started working with families, with kids, andIt just kind of grew from there. Dr. Deb Muth 05:40Yeah. Yeah. Yeah, and I think being a mom who went through that yourself, and…was seen but not heard, and turned away from the traditional medical community, you’re forced to start finding answers on your own. And we always feel like we’re on an island by ourselves in the medical world when we’re doing that. Anju 06:01Yeah, I, it was really hard when I found out, you know, about…Integrative medicine, and just different…ideas and approaches to diet and supplements, I thought, how come I wasn’t trained in any of this?And… Dr. Deb Muth 06:21So angry when I learned some of the things that I learned in the beginning. I was like, same thing, like, how did they not teach us this? And then I think, you know, it’s my fault, was I asleep, was I not paying attention, whatever. And then you just realize, like, there’s this whole part of the human body.That they just didn’t teach us. Anju 06:42Yeah, so then I… I, probably like you, we had to learn it on our own. There weren’t, like, classes or any way to learn this stuffAnd I just reached out. There’s a clinic that,I don’t know if you’ve heard of the Pfeiffer Treatment Center? Dr. Deb Muth 07:00No. Anju 07:01Do you know Carl Pfeiffer from the attendees.He has a clinic called the Pfeiffer Treatment Center in New Jersey. It was called the Princeton Brain Bio Center. Dr. Deb Muth 07:12And in the 70s, they did orthomolecular medicine for patients with ADD. Anju 07:18And schizophrenia. Dr. Deb Muth 07:20Mmm… Anju 07:21and depression.And they used to categorize them in 3 categories, and at the time, they called them histopenics, histidelics, and pyrolurics. Dr. Deb Muth 07:31Okay. Anju 07:32Histapenix were low histamine patients.Delix were high histamine patients, and pyrolurics were their own kind of category. We added another category of copper-zinc imbalances, and then we would categorize that population into high histamine, low histamine, pyrolurics, and copper-zinc.Now we talk about under-methylation, over-methylation. Sure. So, under-methylation is the, you know, the high histamine people, they can’t clear the histamine. And the over-methylators are, you know, what we call about low histamine now.And, and then pyrolurics and copper zinc. So…I lost my train of thought, but in the 80s, when I was going through this, in the 90s, I reached out to the Pfeiffer Treatment Center.He’s like, can I calm and just hang out and, like, see what you guys do? Because I need some answers.And I started working there and, started doing research on copper-zinc imbalances, and I did it in children with autism.And that’s how people started coming to me, and I kinda got, like. not famous, but I, you know, the word spread about, okay, we could talk about it, and Dr.Walsh was the, you know, PhD there that did a lot of the research, so we worked together for 8 years. Dr. Deb Muth 09:05Isn’t it crazy to think that we knew about histamine issues way back in the 70s? You know, I got the pleasure of being trained by, environmental medicine doctors. Dr. Wayne Konetsky and Glenn Toth taught me about environmental medicine, and what we called histamine issues that we call it today, mast cell, right? But when I was learning in the early 2000s, it was labeled as chemical sensitivity. And so it was just people that would react to everything, and we really didn’t know why, and they didn’t necessarily have this very specific allergic reaction, but we knew they were reacting, and we would try to treat them, to lower the histamine way back then. And it’s taken all these years, 25 years, to get to a point where we understand mast cell activation now, and histamine issues.And it’s really sad to me that it’s taking this long for us to identify things.And we’ve all got our journey, and I loved back in those days, too, because as I learned, I would call people up and say, hey, I just got a patient from you, and they told me this great story, and I have other people, can I come see what you were doing? And back then, everybody was very open. They were like, yes, please, come, learn. Now everybody’s like, oh, we can’t teach you, we can’t give you our secrets, but…Or pay me $20,000 to come learn with me. But back then, I mean, everybody was just… we were all in the same boat. We were all just trying to learn from each other. Anju 10:36Oh, yeah, oh yeah, and any bit of knowledge you got, you’re like… Dr. Deb Muth 10:41Yes. Anju 10:41God, you know, I learned this piece, and… Dr. Deb Muth 10:43Hmm? Anju 10:44We just kind of built from that. I keep thinking about back then, you know,the under-methylators, over-methylators, copper, zinc, and then I learned about metals.And then, as a physician, I was like, oh, okay, well, there’s mercury in vaccines, there’s aluminum in vaccines, and now I’m seeing these high levels. Dr. Deb Muth 11:04In my patients, now what happens? Anju 11:07And then we started, kind of, trying to get the word out about those things. Dr. Deb Muth 11:13Yeah. Anju 11:13And in 2000, a lot of the people that I knew put out a paper about, you know, mercury. Dr. Deb Muth 11:22And then… Anju 11:22And we all got on the Mercury bandwagon. Dr. Deb Muth 11:25Yes. Anju 11:26And did that for a while, and then we started learning about other things, like mitochondrial issues in chronically ill people, and these chronic infections, like Lyme disease, and so… and then now, you know, understanding mast cell activation, cell danger response. Dr. Deb Muth 11:44On endocrine, and adrenals, and hormones, and… Anju 11:48Yeah. Dr. Deb Muth 11:49biofilms. Anju 11:50Biofilms, I started talking about that in 2007. Dr. Deb Muth 11:54And so then… Anju 11:56It just… it just kind of keeps adding, and keeps adding, and keeps adding, and it’s like…Sometimes you think, how come I didn’t know about this back then? But I feel like it’s a process. Dr. Deb Muth 12:06It definitely is a process, and it’s amazing to seehow many people are researching different things, and they’re all, like, putting a piece of the puzzle together. And I think this is really important for our listeners to understand, is when you see a practitioner and they don’t have all the answers, this is why. It’s very complicated, it’s not black and white. And I’ve had patients over the years say to me, well, why didn’t you say this to me 6 months ago? And the truth of the matter was, I didn’t knowabout it 6 months ago. Like, all of this stuff is just… it’s evolving constantly, and when you’re a practitioner like Dr. Usman and myself, you are learning every single day. Our training has never stopped from the day we stepped into integrated medicine, and you just… you keep learning new things, and sharing new things, and talking to new people, and that’s what expands our knowledge base. Anju 12:57Yeah, the more I learn, the less I feel like I know. Dr. Deb Muth 13:01Yes, me too. Every time I go to a conference, I’m like, how did I not know this? How am I stupid? And I know we shouldn’t say that word and call ourselves that, but sometimes you feel like that. It’s like, how did I not know? Anju 13:14Or you’ll see a patient, and you’ll look at them, and you’re like, how come I didn’t realize this about this particular patient? Dr. Deb Muth 13:20Yes. Anju 13:21Yeah, they present differently, see things differently. I think that’s why it’s good to find a doctor that you trust and that you can work with, because it’s evolving. Dr. Deb Muth 13:31Yes. And, you know, we have those patients that they come, and I get those. I call myself, like, a tertiary care center. Anju 13:38You know, you get those patients that have been everywhere, and seen every doctor, and then they’re like, you’re my last hope, you’re gonna solve all my problems, and…I say to them. We’re a team, like, we’re gonna solve these together, but it takes time for me to unravel this puzzle. Dr. Deb Muth 13:54Excuse me? Anju 13:54And it… and sometimes, you know, there’s a few hits and misses along the way. Dr. Deb Muth 14:00Yup, but if. Anju 14:00If we keep at it, you know, we also say it’s a marathon, not a sprint. Yes. You know, if we keep at it, we can kind of figure it out together. Dr. Deb Muth 14:09Yeah, and a partnership, for sure, because without the feedback of the person you’re working with.understanding, like, we do this, and this happens to you, it’s very complicated as a practitioner to then be able to figure out, what do we do next? I see more and more clients these days, they come in and they just want to ask me within the first 5 minutes of, what am I changing? And I’m like, I have no clue yet. Like, you have to tell me what’s happened since the last time we did something, and then we have to look at labs, and we have to look at this, and we… it’s a synopsis.that we have to look at. You know, it’s not that black and white for us to be able to put the pieces together for them. Anju 14:47I think my most successful patients are the ones who are able to communicate with me.Their ups and downs. Yeah. And they also use their own intuition. Help me guide them. Dr. Deb Muth 15:06Yeah. Anju 15:07So, there are some people that they just hear, you do it, and you tell me.There are people who try to tell me everything. Dr. Deb Muth 15:15Okay. Anju 15:15Say, I want you to do this, do this, do this. Dr. Deb Muth 15:17Yeah, so I was like, okay. Anju 15:19I can do those things, but, you know, like. Dr. Deb Muth 15:21Yep. Anju 15:22think about blah blah. But, like, this… that collaboration.and, intuition. I kind of feel like even thoughI’ve trained allopathically as a traditional medical doctor. I feel like as I learn, I learn that being open and,Letting go of fear. Dr. Deb Muth 15:46Yeah. Anju 15:47And, not trying to jump on every, like, new thing, and being. Dr. Deb Muth 15:53consistent. Anju 15:54and diligent. really helps. Dr. Deb Muth 15:58It helps a ton. We see that, too, you know, the latest…Instagram influencer that’s talking about the latest topic, and all of a sudden, everybody sees themselves in there, and they must have that, but not realizing putting those connections together. It’s like when MTHFR came out, right? We were all so excited that this was going to be the detox gene.And then we learned so much more about genes, and now MTHFR is very popular again, and everyone’s talking about it, but they don’t understand how some of those other genetics fit together. And if you don’t understand that, we’ve all done it, we’ve all made people worse instead of better, sometimes when we’ve given too many methyl groups together, or this supplement without this support before we knew that there was another gene that we had to support for that.And I think it’s really important for people that are listening to us today talk about this, is don’t just jump on the bandwagon. Like, you really want to work with somebody seasoned who understands how all these pieces fit together. Anju 16:57Yeah, and I think that’s what individualized medicine is about.And there is no magic here, a magic bullet.I think that example of MTHFR is really good. Now, President Trump talked about Leukovorin. Dr. Deb Muth 17:14Yes. Anju 17:15in, and, you know, he’ll get up and say something like, leukovorin cures autism.And then the rest of us are like…Did you just say that? Dr. Deb Muth 17:26Yep, he did. Anju 17:30It’s folinic acid, it’s calcium folinic acid, it’s been around a long time. We’ve been using it for 20 years. Dr. Deb Muth 17:37Yeah. Anju 17:38But it does help a subset of people who potentially have what we call cerebral folate deficiency.And some of those people are misdiagnosed as autism. Dr. Deb Muth 17:50Yeah. Anju 17:51So, are you treating autism, or are you treating cerebral folate deficiency?same thing I could say about… I have a lot of cases of kids who recovered from autism.and severe ADHD using chelation type of. Dr. Deb Muth 18:06up. Anju 18:06Approaches, or detox approaches.again, did we treat their ADD and their autism, or did we treat their lead…Toxicity or lead burden, and their symptoms of those things got better. Dr. Deb Muth 18:20Yeah. Anju 18:20So, like, to put a big, like, a label like, oh, ADD on something, or autism on something, I think it does a disserviceTo the individuals, because it’s such a broad issue. Dr. Deb Muth 18:35It is, and I think the diagnosis has gotten to be much more popular these days.And yes, thank goodness we’re getting better diagnostics, but sometimes we’re getting over-diagnosis, or like you said, it may look like one thing, but it could be something else, but because it looks like autism, they’re going to get labeled with autism.And in some respects, that’s good, they can get more services that way, but sometimes we’re missing the actual picture of it. Can you talk a little bit about how autism is different than the cerebral folate deficiency? Anju 19:11Yeah, so there are some people that make an antibody to their folate receptor. Dr. Deb Muth 19:18Hmm. Anju 19:20So, to get folic acid into your cells, there’s a receptor on your cells. Dr. Deb Muth 19:25And then the folate has to bind to it, and then it lets it enter into the cells. Anju 19:30And there’s these receptors that allow folic acid to get into your brain.Now, you and I know when you put folate in your brain.On one end of the folate cycle, you help make more neurotransmitters. You’ll make something called BH4, and that’ll help make serotonin and dopamine, and then norepinephrine and epinephrine. So folate is really important for making your neurotransmitters, folate and B12.On the other end, it’s like, another cycle on the other end of folate is our methylation cycle.And methylation is so important for our RNA and our DNA, and making choline, phosphatoly choline, and making creatine for speech.And helping us with all the precursors for detoxification.So without folate in our brain, we can’t make our neurotransmitters efficiently, we can’t break them down efficiently, and we can’t detox our brain.Imagine what that will do to your brain. Dr. Deb Muth 20:36Yeah, Anju 20:37And you will see symptoms like speech delays, cognitive delays, processing issues, poor attention.All of those things. Excitation, anxiety.All of those, and so if the folate isn’t getting into the brain efficiently, then we’ll have all these symptoms, and we’ll end up with diagnoses like these. Dr. Deb Muth 20:59Yeah, so is there a way that people who are listening to this can request a test to see if they make this antibody to folate, or is it more of a diagnosis of exclusion? Anju 21:14That’s a great question. When I first started doing this, like, 20 years ago, there was, like, a university that was doing this.studies, and it was Dr. Quadros. He was the guy, and we would take samples and send them to his lab, and he would tell us about these blocking and binding. Dr. Deb Muth 21:30folate antibodies. Anju 21:32And if patients had positive blocking or binding folate antibodies, we would follow his protocol. And he’s done papers on patients with severe autism.Where he found these folate antibodies, and then did spinal taps on the kids, and they were associated with this cerebral folate deficiency. the cerebral… spinal fluid.And in his papers, he gave .5 to 2 milligrams per kilogram of calcium folinic acid, which is leukovorin. It’s a vitamin. And over a 6-month to a 12-month period.The majority of those patients improved drastically.Some of them regained speech, and some of them lost their autism diagnosis. Dr. Deb Muth 22:26Because they never truly had autism. Anju 22:29Well, they have autism symptoms, and that’s what autism is, but we call it autisms. Dr. Deb Muth 22:36Yeah. Anju 22:37And so now, like, we need the research to categorize these people. You know, what percentage of autism is cerebral folate deficiency? Yeah. What percentage of autism is, heavy metal. Dr. Deb Muth 22:51Bourbon. Anju 22:52And what percentage of autism is Clostridia overgrowth, or… Dr. Deb Muth 22:57Hmm. Anju 22:57microbiome… Dysfunction, and then there’s overlap. Dr. Deb Muth 23:01Right, yeah, Lyme and mold and viruses. Anju 23:04and infections, and you can see… Dr. Deb Muth 23:07injury from medications and things like that that happen, or birth traumas. Yeah, I mean, it’s not… it’s not as simple as what people think autism is.Why do you think that we’re seeing so much more autism today than when you and I were kids? We didn’t see this that often. I know environment has a lot to do with it, but do you have a couple of things that you suspect are contributing to the rise of autism these days? Anju 23:38Yeah, I mean, that’s a million dollar question. Dr. Deb Muth 23:40Right. Anju 23:41And, just because I work with children, you know it’s not just autism that’s epidemic, and yeah. Dr. Deb Muth 23:49You know that. I mean, it’s… it’s probably… if you add all the epidemics that are happening to children. Anju 23:54Autism still supersedes it.Now it’s 1 in 33s, 1 in 35 boys, I mean, it’s…children. It’s really sad. When I was in med school, it was 1 in 10,000. Dr. Deb Muth 24:10That’s crazy. Anju 24:11What’s causing it? I mean, obviously it’s multifactorial. Dr. Deb Muth 24:15Yeah, 80,000 chemicals in the environment that we never had before. Anju 24:20I, I, I, look, I’ve… 219 million. Dr. Deb Muth 24:26Oh my gosh. Anju 24:27I looked it up today. Dr. Deb Muth 24:29119 million different chemicals in the environment. Wow. Anju 24:33We don’t know how many of those are super toxic. Dr. Deb Muth 24:36Yeah, and we don’t know what they do together. Anju 24:38A lot of them were, like, before, like, grandfathered in and all of that.Yeah, it’s really crazy about the chemicals. So, chemicals… I kind of… feel like…you know, this burden of all this, it’s not just on our children, it’s on our mothers. Dr. Deb Muth 24:56Yes. Anju 24:56oh my gosh, the moms of these children that… And they don’t even realize it, you know, we’re just so happy to be pregnant and have a kid.So I think it really, really starts with that piece. Care, good prenatal care, yeah. Yeah, and not just what we think is prenatal care, taking your prenatal vitamins. Dr. Deb Muth 25:18Yes. Anju 25:19And going to your gynecologist, but what you and I think is prenatal care, you know, before you get pregnant, let’s detox, let’s clean up our diet, let’s get rid of those chemicals, let’s make sure we’re not in a moldy environment.You know, let’s do our due diligence, clean air, clean water, clean food, sunshine. When I did my residency at county, I don’t think I saw the sun for 3 years. Dr. Deb Muth 25:44How?Yeah. Anju 25:46it’s just that intense, and I was pregnant twice, and my eldest hasthe allergies and asthma. Number 2 is type 1 diabetes and mold sensitivities and allergies and asthma. Number 3 has severe chemical sensitivities, mast cell activation,Hormonal issues. Dr. Deb Muth 26:09Yeah. Anju 26:09And… number 4 is my… Golden, baby. Dr. Deb Muth 26:15And those three, you know, those years that you’re there, and you’re not seeing the sunlight, there’s vitamin D deficiency, and we don’t talk about vitamin D that much during pregnancy.I still am appalled that we’re giving folic acid these days during pregnancy instead of folate, but… Anju 26:36Folenic, or methylfolate? Dr. Deb Muth 26:38Yeah, nothing. So, when, when you,discovered vitamin D in pregnancy, and it’s linked to neurodevelopment outcomes. How did you stumble across that? Anju 26:50Well, in… when I started working on Copper Zinc, Dr. Walsh and I would go to the, like, DAN conferences.Yeah. At the time, and it was interesting, because DAM conferences were a collaboration between parents.And practitioners, and researchers. Dr. Deb Muth 27:10Very unique for. Anju 27:11That’s how that new IACC committee is. It’s a collaboration of parents. Dr. Deb Muth 27:17Hmm. Anju 27:18Practitioners, researchers, And individuals with autism. Dr. Deb Muth 27:25Yeah, so for those of you who are listening to us, it’s… we’re talking about the Interagency Autism Coordinating Committee that Bobby Kennedy just put together. It’s called IACC, and they are on a mission to try to do the research to figure out what’s causing autism. Anju 27:43Yeah, and not just causing it, like, these people have been living it, most of the people on that committee have been living it, and their whole lives, for some of them.And being able to bring forwardlike the question about vitamin D, we started seeing a lot of patients in Minnesota. Dr. Deb Muth 28:04Mmm. Anju 28:05who were from Somalia. Dr. Deb Muth 28:08Okay. Anju 28:09Who were… it was, like, 1 in 4 families with kids with autism.And the theory was that the vitamin D levels that they get in Somalia versus the vitamin D levels that the moms get in Minnesota. Dr. Deb Muth 28:27Hmm? Anju 28:28Affected the immune system. Dr. Deb Muth 28:31Yeah. Anju 28:32predispose them. So there’s a few papers on that. Dr. Deb Muth 28:36Yeah, that’s a… I mean, it would be a very significant difference, and when you’re thinking about genetically, like, what their culture, who they are as a species.was used to and adapted to with the sunlight and different things from a different region, geographical region, and then they moved to a new geographical region, that can take decades before the body adapts and readjusts.to that new environment. We don’t think about those things in…traditional medicine, and conventional medicine, as most people know it, but we do in functional medicine. Anju 29:14Yeah, so again, the clinicians were bringing this up, like, why am I seeing so many families? Dr. Deb Muth 29:18Yeah. Anju 29:18Then let me go to the… and then in the think tank, the vitamin D researcher said it’s vitamin D. Dr. Deb Muth 29:24Yeah. Anju 29:25And then they started researching it, and it was almost like a backwards… backwards. Dr. Deb Muth 29:31Thank you. You know, they didn’t first… Anju 29:33Think it. Dr. Deb Muth 29:34Think about it, yeah. Anju 29:35Until you start seeing… and that’s why I think that, like.clinicians like you and me, who are… I consider us on the front lines. We’re the front lines. We are seeing… we’re seeing this epidemic unfold. Dr. Deb Muth 29:46Yes. Anju 29:47front of our eyes, we’re seeing, like, the gut issues and the severe inflammation. We’re seeing the autoimmunity, and now they have to study it. Dr. Deb Muth 29:57Yeah. Anju 29:57They have to study this. They really, really, we really need, we really need protocols, we need tools, we need things that you and I have been figuring out anecdotally with our colleagues over the years, and, oh, how do we treat yeast? How do we treat Lyme? How do we treat metal burden?For this podcast today, I wanted to talk about low-level lead exposure, because for me.1 in 3 children have a lead level, above 5. 1 and 3. Dr. Deb Muth 30:31Yeah, that’s very high. Anju 30:33800 million children. Dr. Deb Muth 30:36And let’s clarify this, because the first thing people are going to think of is, what are they eating? They’re not eating lead paint to get this. That is not what’s happening here. They are getting lead from someplace else, and their bodies are not able to detox this. Anju 30:53And the reason I’m bringing this up is because when I was in residency at County in the 90s, I ran a… I worked at a lead clinic. Dr. Deb Muth 31:01And back then. Anju 31:03When we looked… we just diagnosed lead toxicity, the level was 60. Dr. Deb Muth 31:10Their level had to be 60 to diagnose them. Anju 31:13Correct. Dr. Deb Muth 31:13Oh my gosh. Anju 31:14And that’s when we would treat.And back then, there was a study, it’s called the TLC study, where they used DMSA, which is a drug to lower lead.And our goal was to get it from 60 to 20. Dr. Deb Muth 31:33And was the normal range the same back then as it is today? Anju 31:37The normal range has gone from 60 to 40 to 20 to 10 to 5 to 3.5.But you and I know I’m the normal range. Dr. Deb Muth 31:47Yes. Anju 31:47Zero. Dr. Deb Muth 31:48Zero. Anju 31:50So… so again, in my… in the lead clinic, we were given DMSA, and we got the lead from 60 to 20, and the number one thing was to get rid of the lead in the environment. Dr. Deb Muth 32:02Yeah. Anju 32:03But we haven’t evolved since then.Because in that study, It did not improve cognitive abilities. So if you think about what lead does, it causes attention issues, slow processing, it affects hearing, it can cause hyperactivity, it can cause impulsivity, it can cause aggression, it can cause constipation, it can cause hypotonia.So if you think about all these kids with ADD and autism, how many of them have low-level lead exposure from the lead pipes? In Chicago, it’s a big, a big problem. Dr. Deb Muth 32:37Yeah, Milwaukee. Anju 32:38Everybody thinks Flint, Michigan, but Flint, Michigan is not the only place. Dr. Deb Muth 32:42Right. Our infrastructure is so terrible, it has not been updated, and even though you might look in your house and you might see a white PVC or plastic pipe, what’s coming under the ground to the house in the cities is usually still lead. Anju 32:58Right. Right. Dr. Deb Muth 33:00Yeah. Anju 33:01So, I guess the point is, is that…the… the idea of, like, studying this. So, again, they study this, and they say, well, we’re not going to treat low-level lead exposure because it doesn’t improve their cognition.But did they really treat it? Dr. Deb Muth 33:18Right. We got it from 60… we got it from 60 to 20. Right. But when I know, where is the lead hiding? Anju 33:24So high. Look at the bones, it’s gonna be coming out. It’s gonna be coming out, especially during puberty. What happens to some of our kids during puberty? They just go a little wonky. Comes out again during menopause. Dr. Deb Muth 33:38Yes. Anju 33:39I don’t know, male menopause, too. Like, we’re all losing bone mass then, and our lead is coming out, our blood pressure goes up. So, again, these are some of the areas that I think, like, really need some… hard… looks. Dr. Deb Muth 33:53Right, yeah. So, what are you hopeful about this committee? Like, are you hopeful that this committee is going to be able to research some of these big things, and we’re really going to be able to find answers around some of the functional things and the biochemical things that we see, you and I know happen in the body, that might give some standardization and education to practitioners in the future. Anju 34:23Well, I think this committee understands the scope of the issues.And they’re coming from different perspectives, like I mentioned, research. Dr. Deb Muth 34:33Yeah. Anju 34:35really highly qualified MDs. MDs like you and me, who have been on the front lines. moms. Dr. Deb Muth 34:43Yeah. Anju 34:44dads, patience, And so, the strategy would be to get, again, their input, and then…get the places… people in places to do their research. And even make some guidelines and some, like, you know, thoughts about what we want to put out there. Dr. Deb Muth 35:05Yeah. Anju 35:05You know, how do we want to strategize for… Dr. Deb Muth 35:08Prevention. Anju 35:10Like, the pre-pregnancy thing. Dr. Deb Muth 35:12Yeah, I’m really hopeful that this doesn’t become a… political football,And it doesn’t get taken away if the administration changes or whatever, because people need to understand that this kind of researchthis is going to take decades for people to do. Granted, we have AI, and AI can help a little bit and get some things quicker.But trying to figure out all of these nuances to why the body does what it does is not gonna be, like, next week we’re gonna find out that this was the single cause, and I know a lot of people, they’re afraid of the vaccines, and that’s gonna be the sole answer.And that has a piece of it, but it is just a small piece of it for some people larger, but at the end of the day, that’s not what this is about. This isn’t about just labeling one thing that is the cause of autism, because it is not one thing. It is so multifactorial. Anju 36:09And I think that whole cause, I know,A lot of money has gone into. Dr. Deb Muth 36:16Yeah. Anju 36:16looking at that. They’re looking for the gene, right? The gene that causes it, and… Dr. Deb Muth 36:23answer. Anju 36:24They have not… they’ve spent millions of dollars looking for this.And it’s not gonna pan out. It’s not. Dr. Deb Muth 36:33I’m not. Anju 36:34pan out. It’s more complex, like we’re talking about. Dr. Deb Muth 36:38Yeah. Anju 36:38And, I do think that sometimes, you know.Even though, like, politically, it seems like it’s a political topic, but it has zero to do with politics. Dr. Deb Muth 36:52Yeah, exactly. This is our children. This is the future of our country, the world. I mean, America’s not the only place that has kids with autism. I mean, this is the future of humanity. If we don’t figure out what’s injuring our children, there will not be a humanity that you and I have seen. It will be different. And, and this is important, we owe it to the future of our generations, we owe it to our children to figure this out and clean up our environment, and make it safe for everybody. Anju 37:24Yeah. Clean up our air, clean up our water, clean up our food… Dr. Deb Muth 37:29Yeah. Anju 37:30You know, our lifestyle a little bit, but… Dr. Deb Muth 37:32hoodie? Anju 37:33It’s… it’s… it’s everywhere. I travel all over. Dr. Deb Muth 37:36Bye. Anju 37:37Consult with doctors in different countries, in Italy, in India, Bulgaria, Romania… Dr. Deb Muth 37:46Yeah. And. Anju 37:48we’re going to Australia for med maps to treat doctors in, in April. And it’s a problem everywhere. Dr. Deb Muth 38:00Yeah. Anju 38:01really big problem, and it affects everybody. Even if you don’t have a child with autism or a grandchild with autism, it’s still affecting families, becauseI kind of think of ADD as being on the spectrum, in the sense thatI think the same kind of positive issues that lead to the autism are causing the ADD, just to… you know, your genetics are playing a little bit of a different role, whatever… whatever protection you have is a bit more there, but we’re seeing kind of, like, similar metabolic… issues in our ADD population. Dr. Deb Muth 38:43Yeah. Yeah, there’s so many different levels of this, and it does affect everyone. Like, I think everybody knows… a family or someone in their classroom or their school or their community that’s affected by, definitely, ADHD, Asperger’s, autism, all of those things, whether you’re high functioning or not functioning or whatever.everything is affected. The school system is affected, your social circles are affected, your families are affected.the healthcare is affected. I mean, everything is affected. We owe it to our families and our communities to help people try to figure this out. Anju 39:22Yeah, and I think even if it’s not ADD, or ADHD, or autism we’re talking about, or even OCD, anxiety, depression, I mean, you know… Dr. Deb Muth 39:33Candace? Anju 39:34Any kind of chronic illness that people are dealing with has underpinnings of these kinds of, you know, issues. Dr. Deb Muth 39:43Yeah. Anju 39:44Any autoimmune issue? That’s great. Dr. Deb Muth 39:48inflammatory syndrome that we’re seeing these days, I mean, the pants-pandas piece, the biofilms, the strep, I mean, our environment is just so laden with infections and biofilms, and And, you know, when you and I first were learning about this, we never thought anything could cross the blood-brain barrier, right? It was pristine, there’s nothing getting in there unless you could drive it in there, and now we know that’s different, and now we’re seeing bugs in the brains of people who have had Alzheimer’s disease and dementia because they’ve donated their brains for research, and we can see what’s crossing the blood-brain barrier, and it’s really scary. Anju 40:24Yeah, yeah. There’s a lot of things we don’t know. Remember when we just found out that they… the brain had a lymphatic system? Dr. Deb Muth 40:33And that wasn’t About, what, 5, 6 years ago? 7 years ago, maybe? Yeah, not that long ago. Anju 40:38You’d be like, why wouldn’t the brain have a lymphatic system? Dr. Deb Muth 40:41Yeah! Yep. Anju 40:44Yeah, so things get in and out. Dr. Deb Muth 40:46They, they definitely. Anju 40:47You know, they get in easier than they get out, I think. Dr. Deb Muth 40:50I agree, I think they do, for sure, for sure. You know, when you’re talking to a family who’s undergoing issues like this, what’s the role, do you feel, in personalized nutrition to help them make things better? Anju 41:10I kind of go through, like, a little bit of a start here, start there, and then do this. I always start, number one, I say, okay, you gotta clean up your environment, because… We gotta do that. Dr. Deb Muth 41:24But that’s a… Anju 41:24process. And then number 2 for me is cleaning up the diet. And then, when you say personalized nutrition. To me, figuring out what is a good diet for the individual. Dr. Deb Muth 41:38Makes it a little bit difficult. Yeah. Anju 41:41I mean, there is, like, healthy eating concepts, where, you know, eat upside-down food pyramid kind of concept, I guess, is the new one, but whole foods, whole grains, organic as much as possible, especially for animal products, good fats, avoiding, you know, hydrogenated oils, and those seed oils, and… Just some basics, and then individualizing for my patients, a lot of people with any kind of autoimmune condition, and we kind of put autism in that neuroimmune, autoimmune, inflammatory That, gluten-free, dairy-free, and sugar-free kind of go there, like, as a given. If there’s a lot of gut issues, a lot of our folks have oxalate issues. And then we have to sometimes do low or limited oxalate diets. Many of my patients can’t convert glutamate to GABA efficiently. Dr. Deb Muth 42:44Yeah. So, high glutamates associated with OCD, and kind of looping or repetitive behaviors. Anju 42:51So, low-glutamate diets. And then some of my patients have SIBO, and then we do the low FODMAPs diet, and then some of my patients have messel, and we’ll do the fail-safe kind of concept with the fail-safe diet, so nutrition can get a little bit complex for certain people, but there are some basics, and then there are some, like, more of… Individual, kind of, diet approaches. And then there’s supplementation. There’s some things that I call foundational. For me, certain things most people need that have a chronic illness. Dr. Deb Muth 43:26Yeah. Anju 43:26Vitamin D3 is one of those. Omega-3s are another one for most. And then, because I did a lot of research on copper, zinc, I think 3 mineral… 4 minerals. I feel like people underdo minerals. They’re so important. Every single enzyme has a mineral cofactor, so… zinc is really important for my population with autism and ADD. 99% of them had high copper or low zinc in. Dr. Deb Muth 43:58Wow. Anju 43:59Over 400 patients that we tested. Dr. Deb Muth 44:01Wow. Anju 44:03And, magnesium.So, zinc, magnesium, and then the other two minerals I really like are selenium for glutathione. and molybdenum for sulfation, and glycolysis. So… So those are kind of my foundational pieces, and then I like to work on the gut next. So, from a nutritional perspective, prebiotics are my new favorite. Dr. Deb Muth 44:29Yeah, we go in and out with prebiotics, probiotics, postbiotics. Anju 44:34Yeah, exactly, symbiotics. Dr. Deb Muth 44:36Yes, exactly, exactly. Anju 44:38demos, and… Dr. Deb Muth 44:40Yeah. Anju 44:40So yeah, biofilm busting, and all of that, so… And then I go into my other nitty-gritty stuff, like you probably do. Dr. Deb Muth 44:47individualized, right? So, you created, True Healing Nature, a supplement line, a supplement company, correct? Anju 44:56Yeah, True Hing Naturals. Dr. Deb Muth 44:58Truly Naturals, okay. Anju 44:59True, he is hard. Dr. Deb Muth 45:01Oats! Anju 45:01True! Dr. Deb Muth 45:01Healing natural. Got it, sorry about that. Tell us a little bit about what made you decide to create a supplement company. Was it because you couldn’t find formulations that you wanted? Couldn’t find clean products? That’s a big problem for people, for sure. Anju 45:19Yeah, a little bit of both. I told you that my kids were really sensitive, they had a lot. Dr. Deb Muth 45:23I know. Anju 45:24And when I would even try to give them things like ibuprofen. Dr. Deb Muth 45:28or Benadryl. Anju 45:30For allergies, they couldn’t tolerate the products that were over-the-counter. Dr. Deb Muth 45:35Yeah. Anju 45:35So, in 2007, I opened a compounding pharmacy so I could make things clean for them. Dr. Deb Muth 45:42Yeah. Anju 45:43And I thought it was so valuable. And so then I started seeing, like, certain issues with my patient population, for instance, say, mitochondrial issues. So, I would compound a mito cocktail. in my pharmacy. And then I had True Healing Naturals manufacture it, so I didn’t have to have patients get it compounded. Dr. Deb Muth 46:08Got it. Anju 46:09So that particular product’s called Mito Rescue. Okay. But then, I started… I do a lot of oats testing. Organic acid urine tests. Dr. Deb Muth 46:19Yeah. Anju 46:20But there’s, like, a marker on there for, oxalates, and I saw a lot of patients with oxalates, and oxalates inhibit some… an enzyme called, pyruvate decarboxylase. And that basically means you can’t take your carbs and turn them into energy. Dr. Deb Muth 46:38Okay. Anju 46:39So, if I saw this pattern with high oxalates and high pyruvic acid, I knew that that enzyme wasn’t working very well, and that enzyme is B1, molybdenum, and biotin dependent. So, I started compounding doses of that. And then I turned that into a product called Motor Connect, because high doses of biotin help with connectivity in the cerebellum. Dr. Deb Muth 47:08Got it. So, I did come… kind of start with the compounding pharmacy, try it, use it, and then turn it into. Anju 47:17products, and I have one for copper-zinc imbalances called True Minerals. Dr. Deb Muth 47:21Yeah, to fix the problems that were not commercially available. Could you talk a little bit for people who don’t understand what a compounding pharmacy is? Anju 47:32So, when you guys go to a pharmacy, you, you know, you send a prescription, and it’s already, it’s manufactured, and you get it. Well, a compounding pharmacy actually makes that for you. So they get the raw ingredients, and then they make that prescription. So it’s still prescription-based. But, for instance, say, I want Nystatin. And I go to Walgreens or CVS, and the nystatin there is a liquid, and it has yellow dyes and sugar. Dr. Deb Muth 48:02Yep. Or it’s a title, and it’s red. Anju 48:04or it’s bread, and a tablet, and I, like, oh, I want to treat the yeast, but I don’t want to use this. So I sent my nystatin prescription to a compounding pharmacy, and it’s Nystatin. That’s what you got. Yep. Dr. Deb Muth 48:17disappear. Anju 48:18So, pure compounding pharmacy, it’s pure, it’s pure stuff. Especially for our mast cell people. They’re so sensitive, and, you know, my kids are all mast cell, and so I just find that excipients, some people will say, oh, this doesn’t work, and I said, it’s probably the excipient that’s stimulating your mast cell activation. So, yeah. So, compounding pharmacies, You know, with all the big, kind of. conglomerates and big companies, they’ve become… they used to be, like, mom-and-pop kind of places. And my pharmacy is like that. It’s just… it’s… it’s a few of us, and we… we do it, and it’s nothing big or fancy, but we get the job done. So, we compound things like methylcobalamin injections, hydroxycobalamin, low-dose naltrexone. Different things for chelation. So, it’s nice. I love having it. Dr. Deb Muth 49:11Yeah, the compounding pharmacies really have made a huge difference for people who are sensitive. You know, so many ingredients are contaminated with corn and gluten and soy and dairy and all the big things that we want to stay away from, especially if we’re trying to treat the immune system. And even if the manufacturer says that’s not in our product. it’s contaminated, usually, because they’re usually preparing it in a facility that has those things floating around. Right. And for people who are really sensitive, that’s going to create some issues. Anju 49:45Yeah, people who are sensitive are sensitive to parts per trillion. Dr. Deb Muth 49:48Yeah. Anju 49:49I found that with my daughter with chemical sensitivity. You don’t have to see it, or you don’t have to smell it, but they could react to it. Dr. Deb Muth 49:55Yeah. And, a lot of these, like. Anju 49:58These different, substances, for instance, like enzymes, even the natural enzymes. Dr. Deb Muth 50:03They’re cultured in Aspergillus. Anju 50:07And so they’re extracted from mold. Dr. Deb Muth 50:10Yeah. Anju 50:11And so the really mold-sensitive people will maybe take a digestive enzyme, and they’ll have a reaction, and they’ll not understand why. Yeah. But it’s not because of the enzyme, it’s because of where it’s coming from. Dr. Deb Muth 50:22Yeah, where it’s cultured from. And if you have mold toxicity and mold sensitivity, and we’re looking at your mold test, wondering why are you getting a hit while we’re trying to clear it out, sometimes we forget that those products, and a variety of products that we used are cultured from molds. Yeah. Anju 50:40Yeah, yeah. It’s hard for the laypeople to understand all. Dr. Deb Muth 50:45You know. Anju 50:45of these pieces, but I think that… It used to be, like, the insurance companies would cover prescriptions from compounding pharmacies, but over the years, the lobbying and all of that has gotten so intense where, you know, a lot of that ends up out of pocket, but it’s really… it doesn’t really get that much more expensive than a copay would be. Dr. Deb Muth 51:05Right, right. Anju 51:06People just don’t know about it, yeah. Dr. Deb Muth 51:08Yeah, absolutely. So, you’ve been doing this now for more than 17 years, and you’ve made some remarkable progress with your patients. Can you share some success stories that still inspire you to do what you do every day? Anju 51:27I don’t know about you, but, like, when you first start, I think, God puts you… God puts all those really gray cases in front of you, because you’re like, whoa! Dr. Deb Muth 51:37Yes, and maybe… Anju 51:38I gave this patient methylcobalamin, and they started talking. Yeah. So methyl B12 back in the day was huge. you know, Dr. Nebrander’s protocol, and we would use that, and we would get speech, and… I mean, I’ve… it’s just… there’s hundreds of cases. There’s hundreds of cases, and same with Leukovorin now. Not for everybody, but when it really works, it’s really, really decent. Dr. Deb Muth 52:07Yeah, and worth a try, you know, if… if we suspect that’s what’s going on, these things are worth a try, because sometimes you just never know what’s going to be the key that unlocks the answer for them. Anju 52:19Yeah, but I think, you know, like, I can say… chelation, or… you know, I can, like, throw out a bunch of stuff. Dr. Deb Muth 52:26Okay. Anju 52:27In terms of, like, I’ve… I… I have those families, and I have those kids who are just… they’re just amazing, and they’re in college, and having jobs, and having kids, and… Dr. Deb Muth 52:38Yeah. Anju 52:38you know, all of that, but I think, you know, the ones that really strike me are the ones that I have to work really hard to get. Dr. Deb Muth 52:44And then we’. Anju 52:45they go, it’s not like, oh, I just did the diet, I’m cured, or I did this, and I’m better, or… Right. And I have those cases where the parents come to me and they say, I never thought my kid would Be going to college. And I never thought we would be here. So, those are the ones that really, like, when I get the little notes, or the, like, the college or the high school graduation pictures, and they… and some of them, you know, you lose touch with because they don’t need me anymore. Dr. Deb Muth 53:19Yeah. Anju 53:20And then you hear about it later. And then, I think the ones that don’t get better are the ones that, like, sit with me the most They just sit with me, and we’ve had this population of children with severe apraxia. So, apraxia is a motor planning issue, but if you saw these patients, you would think that they were… mentally deficient. Dr. Deb Muth 53:44Hmm. Anju 53:45Because they can’t talk. Dr. Deb Muth 53:46Yeah. Anju 53:47They’re the classic person that you would see that looks autistic. You know, running around, excited, verbal stimming, no speech. Dr. Deb Muth 53:57Hmm. Anju 53:58And that group of patients are incredibly Brilliant. And we are just finding out about how smart they are. There’s a book called Underestimated by J.B. Hanley and his son Jamie. JV has all the resources in the world. He used to put those ads in the New York Times about autism and vaccines. He could take his kid anywhere and do any treatment, and still, we… Blocked. Locked. Couldn’t get through. Couldn’t get through. And they started, spelling. To communicate, and this speller’s method, and it just opened a door. And it opened a door for so many of my patients who are metabolically challenged, so we do help them metabolically. Getting that ability to communicate. Some of them never got high school diplomas, and they went back to get their high school diplomas so they could go to college. Dr. Deb Muth 54:56Oh, wow, that’s amazing stories. Anju 54:59Yeah, and Elizabeth Bonker is one of those spellers, and she… she was a valedictorian in her high school, college. And she did a valedictorian speech that went. Viral, and she’s one of the people on that committee. Dr. Deb Muth 55:13That’s awesome. Anju 55:14He’s non-speaking. She… she can’t not speak. Dr. Deb Muth 55:20Wow. Anju 55:21But they asked her to be on this committee. Dr. Deb Muth 55:24That’s fantastic. Anju 55:26Huge. Dr. Deb Muth 55:27That’s huge. It is huge. There’s a way she can communicate, she just can’t verbalize the way you and I verbalize. Anju 55:34She’s brilliant. I mean, people on that committee, the, the individuals with autism on that committee, I know they’re brilliant people. Wow. But if you… if… If people saw them, they wouldn’t see that. Dr. Deb Muth 55:47Right. Anju 55:47So, I guess, for me, it’s like seeing the brilliance, seeing the competence in individuals, and as a practitioner, just trying to optimize it. But I know, like, the neurodiversity people say, okay, you know. We’re fine, and it’s like, yes, you are fine, you’re fine, and it’s okay. Whatever it is, it’s okay. But if you’re struggling metabolically, and we can help you feel better. What’s… what’s the harm in that? Dr. Deb Muth 56:13Right, let’s do that. Yeah. So you’re also part of something called MAPS, and you’re educating doctors worldwide. Tell us a little bit about MAPS, and how do you see the integrative pediatrics evolving in the next decade as a result of what we’re learning today? Anju 56:36I think we’re at a crossroads, and Maps is kind of in the middle of that crossroads. It used to be called Dan. Dr. Deb Muth 56:47Okay. Anju 56:47Autism Now. Dr. Deb Muth 56:48Yeah. Anju 56:49And then they kind of dissolved Dan and turned it into MedMaps. And MedMaps is Medical Academy for Pediatrics and Special Needs. So it’s not just special needs, it’s pediatrics. as well.So it’s kind of like the functional medicine for peds. And our goal is to train an army of clinicians to be the frontline. And how medicine should be, and how people should be trained. We should train them to do these types of things from the beginning. Because now it’s backwards. Dr. Deb Muth 57:28Right. Anju 57:30they come see us when nobody else can help them. But, so, we have some good leadership, and then… We are just trying to get people trained so that they understand that this is the future. Dr. Deb Muth 57:50If there’s a practitioner that’s listening to this, how do they get involved in MAPS? Anju 57:55They could come to a conference. Dr. Deb Muth 57:57Okay. Anju 57:58And the website is medmaps.org. And there’s 2 conferences a year. And we have scholarships, and we want people to come, so contact You know, the executive director, and… We just want people to come, share… their experiences, learn about functional medicine, it’s evidence-based, we try to… it’s really scientific, you know, we talk a lot of science. Dr. Deb Muth 58:25Oh yeah, a lot of science. Anju 58:26We talk a lot of science, and and so hopefully we can move all of this forward. Baster. Dr. Deb Muth 58:35I think the greatest thing, when you get into the functional medicine integrative space like this, and MAPS, and some of the other environmental academies and things like that. A lot of people might think it’s not science-based, and I’m always amazed at how much science we have, and it’s right, it’s all the things that you and I learned in biochem class, and chem class, and organic chem, and we were like, oh, let’s just learn this to be done with it. And then you get back, and you start doing integrated medicine, and you realize, like, all of that biochemistry stuff is what we needed to truly understand to fix people these These days, and you go back and you have to learn that in an intense version of it. Anju 59:18I felt like I finally understood the Krebs cycle, when I learned how it made metabolic stents, instead of just memorizing these cycles for… For the… Dr. Deb Muth 59:30Right? Like, they, like. Anju 59:32They just make sense to me. Dr. Deb Muth 59:34Yeah. Anju 59:35And I think that’s so important to understand, that all of this has science behind it, and it’s there, and the research is there. Dr. Deb Muth 59:46It’s just us having to learn how to utilize it, and recognize that not every person is going to be straightforward, and what we do for one might not work for another. There’s… It’s not as easy as prescribing a prescription and letting the person walk out the door in 10 minutes. That’s not what this is about at all. Anju 01:00:05No, and at MedMaps as well, they have a call for abstracts, and so we’re always looking for research, experience, so if any of the clinicians out there have, you know, things they want to share. then send an abstract to Maps. What a great blonde. I think, one of my doctor friends is doing an abstract on research that was done on sensory qigong massage. Dr. Deb Muth 01:00:34Oh. Anju 01:00:34And it helped with speech, and the theory was that, we were all thinking of the sensory system in the brain, the sensory system. In the periphery being affected neurologically, and how to turn that back on. So, it was… it’s… Dr. Deb Muth 01:00:51That’s neat. Anju 01:00:51Again, with the research, and with the science behind it, and with, like, clinical trials, and all of that. Dr. Deb Muth 01:00:58That’s awesome, I love that.For parents that are just starting in this journey, what would you recommend be their first one or two steps? Anju 01:01:10Educate, educate, educate? How do you get educated? I do think that, TakaNow.org is a good place for, like, a biomedical approach, or this functional approach for autism. It’s the Autism Community in Action. MedMaps is doing a parent conference in March. Dr. Deb Muth 01:01:31Oh, awesome. They usually do that around, Memorial Day, right? Anju 01:01:36They’ll do it around Labor Day in September. Dr. Deb Muth01:01:40Labor Day in September, okay. Anju 01:01:42Yeah, and then mid-March. Dr. Deb Muth 01:01:44Okay. Anju 01:01:45Yeah. And they hadn’t done a parent conference before, but we had parents that wanted to come to the conferences, and it was just for clinicians before. Dr. Deb Muth 01:01:54Got it. Is it Autism One that does theirs around Memorial Day? Anju 01:01:59Oh yeah, they don’t exist anymore. Dr. Deb Muth 01:02:01Don’t, really. Anju 01:02:03conferences. There was. Dr. Deb Muth 01:02:06NAA, the National Autism Association. Anju 01:02:09They don’t do a lot of parent conferences in functional medicine either, so there’s a few left. Documenting Hope. That’s another really nice one. Oh, that’s great. Dr. Deb Muth 01:02:21So, what last words do you want to leave with our listeners? Anju 01:02:29You know, that’s… people always ask that at the end of these… I, I do feel that, Listen to your heart, you know, follow your intuition. Dr. Deb Muth 01:02:40I’ll let that guide you. Anju 01:02:42There’s a lot of information, sometimes it gets to be too much information. It’s hard to process everything, try not to make impulsive decisions about things. And… If you have a child with special needs, or if you have a grandchild with, issues. Presume competence. There’s a lot there. Dr. Deb Muth 01:03:04Yeah. Anju 01:03:05Especially some of these kids with behavior issues. I don’t know how many patients of mine are… Put on psychotropic meds. Metabolic issues, and, you know… It’s like, a lot of them have pain, like headache, abdominal pain, and inflammation, and they’re treating them with psych meds. Dr. Deb Muth 01:03:25Yeah. That’s sad, isn’t it? Anju 01:03:28I think, you know, try to look for the underlying cause. Not just band-aid things. Dr. Deb Muth 01:03:34Where can listeners, learn more about your work and what you do? Anju 01:03:40Oh, that’s tough. I don’t have a book. One of these days. Dr. Deb Muth 01:03:48Yes! Anju 01:03:49Yes, one of these days. I think, you know, med maps, we have a… if they’re clinicians. Dr. Deb Muth 01:03:55Hmm? Anju 01:03:56I have lectured a lot. For, for, communities like Taka, so there’s just a lot of… lectures that I’ve given online. Dr. Deb Muth 01:04:09Awesome. Well, thank you for taking your time with us today. It’s been a great conversation with you. Anju 01:04:15Thank you so much for inviting me, Debra. I’m honored to be here, and thank you for doing the work that you do to put Put this out there for people, because it’s really important information. Dr. Deb Muth 01:04:27Thank you. Thank you for joining me today on Let’s Talk Wellness Now. Today’s discussion with Dr. Usman reminds us that there’s always more we can do. We can look deeper into biology, environment, and lifestyle. to heal the next generation. If this episode inspired you, please share it with a parent or a practitioner who believes every child deserves a chance to thrive. And to learn more about Dr. Usman, you can visit TrueHealthMedical.com or TrueHealingnaturals.com. And if you’re ready to explore your own root cause healing, visit us at Serenityhealthcarecenter.com. You can also follow me on Instagram, and don’t forget to subscribe so you never miss an episode of Let’s Talk Wellness now. Until next time. I’m Dr. Deb, reminding you to nurture your body, mind, and spirit. Be well, and I’ll see you soon.The post Episode 262 – The Root Cause of ADHD & Autism: Beyond the Diagnosis with Dr. Anju Usman Singh first appeared on Let's Talk Wellness Now.
What are some strategies to stay motivated when trying to reach your goals? In this clip, Global Autism Community members share their ideas on this topic. This roundtable discussion about Self-Development and Accountability was hosted by community moderator Michelle Vinokurov, and participants included Christina Kaspersen, Robert Schmus, Danielle Terrell, Andrew Bennett, and Corben Havener. Welcome to Autism Tips & Tools, where we highlight the best practical guidance from previous episodes of Autism Knows No Borders. Whether you're a self-advocate, a family member, or a service provider, there's something here for you! This conversation with our Global Autism Community was originally released on November 3, 2022. Would you like to hear tips on how to embrace a growth mindset? Click the link below for the full conversation and be sure to subscribe to hear more from people connected to autism inspiring change and building community. Self-Development & Accountability, with the Global Autism Community Let's work together to transform how the world relates to autism. ----more---- We appreciate your time. If you enjoy this podcast and you'd like to support our mission, please take just a few seconds to share it with one person who you think will find value in it too. Follow us on Instagram: @autismpodcast Join our community on Mighty Networks: Global Autism Community Subscribe to our YouTube channel: Global Autism Project We would love to hear your feedback about the show. Please fill out this short survey to let us know your thoughts: Listener Survey
The OT Who Showed Up at TED: Bill Wong on Visibility, Neurodivergence & Making Bold Career Moves What does it look like when an occupational therapist refuses to stay inside the OT bubble? In this episode of The BRAVE OT Podcast, I sit down with Bill Wong, the first OT student or practitioner to deliver multiple TEDx talks, publish those talks on TED's platform, and attend many TED conferenendces. Bill is a home health OT, a neurodivergent individual, a TEDx event organizer, and one of the most intentional networkers in our profession. Our conversation weaves through career resilience, neurodivergent-affirming mentorship, and a provocative challenge to the OT community: instead of waiting to be given a fish, why don't we learn to fish for ourselves? If you've ever felt like OT is healthcare's best-kept secret, or wondered what it would look like if we stopped waiting for an invitation and started creating our own opportunities, this conversation is for you. IN THIS EPISODE, WE DISCUSS: • The "teach OT to fish" principle: why Bill believes our profession needs to stop waiting to be invited and start creating our own stages • Resilience, risk-taking, and the "Hall of Fame vs. Hall of Very Good" framework Bill has used to drive his career forward • Neurodivergent-affirming mentorship: what it means to meet mentees where they are while still holding them to their own stated goals • How Bill became the first OT to deliver multiple TEDx talks and what he learned from his early "failed" attempts at organizing TEDx events • What it's actually like inside a TED conference as a paying attendee and why Bill thinks more OTs should be in those rooms • The barriers that keep OTs from showing up in non-OT spaces and how to start breaking them down one brave move at a time • Bill's OT lens on autism, advocacy, and building connections with people completely outside the healthcare world ABOUT BILL WONG, OTD, OTR/L Bill Wong is an occupational therapist based in the United States, currently practicing in home health. He is the first OT student or practitioner to deliver multiple TEDx talks, the first to have his TEDx talks published on TED's platform, and the first to pay his own way to attend TED conferences as a full attendee. Bill is a TEDx event organizer (TEDxAlmansorPark), one of two co-facilitators for AOTA's Autism Community of Practice, and a member of Occupational Therapists for Environmental Action. He is also an autistic individual who brings a neurodivergent perspective to everything from clinical practice to professional advocacy. Connect with Bill on LinkedIn: https://www.linkedin.com/in/bill-wong-24492a18/ Read Bill Wong's LinkedIn article, What Is It Like Inside a TED Conference? Why Should More OT Students and Practitioners Attending In Spite of the Cost & Seemingly Exclusivity? WORK WITH CARLYN — JOIN ACTIVIATE VITALITY If today's conversation sparked something in you, that pull toward building a bolder, more sustainable OT practice and career, the ACTivate Vitality Program might be exactly what you're looking for. It's a community of occupational therapy practice owners who support each other through group coaching, an online community, and an ACT-based framework for building real entrepreneurial and psychological flexibility. It's not about hustling harder. It's about getting clear on what matters to you and building something that serves your life. • ACTivate Vitality Program: balanceworks.online/avprogram • Book a Clarity Call: https://tidycal.com/carlyn/clarity-call
Discover what's possible when love begins with acceptance. This episode is part 2 of our Global Autism Community roundtable discussion about Dating and Relationships, originally released on March 17, 2022. Among other things, we discuss: Memorable dates our community members have been on Common challenges autistic people face when it comes to dating The importance of clear and direct communication Dealing with breakups and moving on Round-table discussions like the one you'll hear today are open exclusively for members of our online Global Autism Community. If you'd like to attend and participate in any of our future events, sign up today at community.globalautismproject.org. ----more---- We appreciate your time. If you enjoy this podcast and you'd like to support our mission, please take just a few seconds to share it with one person who you think will find value in it too. Follow us on Instagram: @autismpodcast Join our community on Mighty Networks: Global Autism Community Subscribe to our YouTube channel: Global Autism Project We would love to hear your feedback about the show. Please fill out this short survey to let us know your thoughts: Listener Survey
Discover what's possible when love begins with acceptance. What challenges do autistic people face when it comes to dating? If you're interested in hearing the autistic perspective on dating and relationships, you'll want to listen to this roundtable discussion with our Global Autism Community, which was originally released on March 17, 2022. Participating in this event were autism self-advocates Olivia Hops, Thomas Iland, Mary Johnston, Scott Edgar, Taylor Duncan, and David Sharif, as well as community members Danielle Terrell, Ben Sharif, and Kia Burton. In part 1 of this conversation, we discuss: Different ways to meet people Transitioning from friendship to romance How to have a healthy relationship when one person is neurotypical and the other is neurodivergent Long-distance relationships Round-table discussions like the one you'll hear today are open exclusively for members of our online Global Autism Community. If you'd like to attend and participate in any of our future events, sign up today at community.globalautismproject.org. ----more---- We appreciate your time. If you enjoy this podcast and you'd like to support our mission, please take just a few seconds to share it with one person who you think will find value in it too. Follow us on Instagram: @autismpodcast Join our community on Mighty Networks: Global Autism Community Subscribe to our YouTube channel: Global Autism Project We would love to hear your feedback about the show. Please fill out this short survey to let us know your thoughts: Listener Survey
A new international proposal is sparking debate in the autism community, with a diagnosis of "profound autism" now under consideration. The proposed diagnosis would describe autistic people who have little or no functional language, an IQ below 50, and who require 24-hour supervision and care. A new Australian study has taken a closer look at what this could mean for children and their families. Jesse spoke with Dr Antoinette Hodge, a Senior Clinical Neuropsychologist at The Children's Hospital at Westmead in New South Wales.
How do we rebuild trust in vaccines when fear and misinformation stand in the way, especially for autistic individuals and their families?In this episode of Patient Advocacy Voices, host Eric Racine is joined by co-host Heather Entenmann, U.S. Public Health Engagement Lead at Sanofi, for a thoughtful conversation on vaccine confidence, trust, and inclusion. Together, they welcome two leading voices in public health and advocacy: Danielle Hall, former Vaccine Education Lead at the Autism Society of America, and Dr. Kelly Moore, President and CEO of Immunize.org.Drawing on lived experience, decades of public health leadership, and frontline advocacy work, the conversation explores why the long-debunked myth linking vaccines and autism continues to persist, and why rebuilding trust requires more than facts alone. The discussion highlights how healthcare experiences, sensory needs, anxiety, and empathy all play critical roles in shaping vaccine decisions, and what advocacy leaders and providers can do differently to better support autistic individuals and their families.In this episode, you'll gain insights on:Why misinformation about vaccines and autism endures, and how to address it with empathy, not judgmentHow healthcare experiences and sensory needs influence vaccine confidence in the autism communityPractical ways providers and vaccination sites can reduce anxiety and create more inclusive, respectful experiences for immunizations in any disease areaHow advocacy organizations, healthcare professionals, and trusted messengers can counter misinformation by leading with empathy and authenticityThis conversation is a powerful reminder that rebuilding trust in public health starts with listening, understanding lived experiences, and meeting people where they are, because confidence is built not just through evidence, but also through empathy.
Discover what's possible when a fresh start brings a new perspective. This week's episode is part 2 of our 2025 Highlights. Today we'll continue to review some of our favorite moments from this year's episodes, specifically from 230-240. Related episodes: Highlights of 2024 Part 2, with the Global Autism Community Highlights of 2024 Part 1, with the Global Autism Community Highlights of 2023: Part Two, with the Global Autism Community Highlights of 2023: Part One, with the Global Autism Community Highlights of 2022: Part One, with the Global Autism Community Highlights of 2022: Part Two, with the Global Autism Community Highlights of 2021: Part One, with the Global Autism Community Highlights of 2021: Part Two, with the Global Autism Community Highlights of 2020, with the Global Autism Community ----more---- We appreciate your time. If you enjoy this podcast and you'd like to support our mission, please take just a few seconds to share it with one person who you think will find value in it too. Follow us on Instagram: @autismpodcast Join our community on Mighty Networks: Global Autism Community Subscribe to our YouTube channel: Global Autism Project We would love to hear your feedback about the show. Please fill out this short survey to let us know your thoughts: Listener Survey
Discover what's possible when a fresh start brings new perspectives. We've reached the end of 2025! To celebrate, we'll be reviewing some of our favorite moments from this year. Part 1 will highlight episodes 216 through 228, and Part 2, episodes 230 through 240. We want to thank you for your support and patience during the first half of the year, when we released throwbacks due to my maternity leave. This pause allowed me to both spend quality time with my family and plan ahead for the podcast. I was eager to jump back in last summer with our new Autism Tips and Tools segment, hoping that these bite-size episodes would bring you helpful strategies that you could implement right away. In September, we re-launched Autism Knows No Borders with our regular weekly schedule of brand new episodes – and with them, new perspectives on more important topics related to autism. If you've been with us for a while, this 2025 recap will bring you back to each of our guests' heartfelt stories. And if you're joining us for the first time, welcome! This should give you a good idea of what Autism Knows No Borders is all about. ----more---- We appreciate your time. If you enjoy this podcast and you'd like to support our mission, please take just a few seconds to share it with one person who you think will find value in it too. Follow us on Instagram: @autismpodcast Join our community on Mighty Networks: Global Autism Community Subscribe to our YouTube channel: Global Autism Project We would love to hear your feedback about the show. Please fill out this short survey to let us know your thoughts: Listener Survey
Discover what's possible when what you give makes a difference. This time each year, our team at the Global Autism Project takes some time to reflect on what we're grateful for. First of all, we're grateful for you, our listeners, and your continued support. We're also grateful for our podcast guests and their willingness to share their stories with us. And of course, we're grateful for our growing Global Autism Community, whose members stay commited to our mission to transform how the world relates to autism. We're also grateful for the launch of our new International Mentorship Program. This valuable training, which used to be offered exclusively to our partners, is now available to a wider range of service providers looking to enhance and scale their programs. Our mentees have access to training across various pillars, from clinical and leadership skills to organizational development and outreach. Programs like our International Mentorship are possible thanks to a larger community of generous donors. We are grateful to each and every one of the people who have ever made a donation. And if you're thinking about supporting our programs and initiatives, enabling us to improve the lives of autistic individuals and their families around the world, stay with us for this episode, where our CEO Molly Ola Pinney explains how you can get involved as a monthly-giving Compass member. You'll also hear from members of our International Mentorship Program and SkillCorps volunteers, who will be providing in-person training to our partners in 2026. Lastly, we hope that this Thanksgiving special will inspire you to reflect on what you're grateful for during this holiday season. From all of us at the Global Autism Project, we wish you a Happy Thanksgiving, and hope you can spend some time with your loved ones this weekend. —------ Become a Compass member today and create sustainable change around the world! Every contribution leaves a meaningful impact and expands our reach to underserved communities worldwide. Click here to join Compass! ----more---- We appreciate your time. If you enjoy this podcast and you'd like to support our mission, please take just a few seconds to share it with one person who you think will find value in it too. Follow us on Instagram: @autismpodcast Join our community on Mighty Networks: Global Autism Community Subscribe to our YouTube channel: Global Autism Project We would love to hear your feedback about the show. Please fill out this short survey to let us know your thoughts: Listener Survey
For years, autism care has centered on one model, but that's changing. The American Academy of Child and Adolescent Psychiatry just redefined what evidence-based care really means. This shift could transform how we support children and families.CME: Take the CME Post-Test for this EpisodePublished On: 11/17/2025Duration: 24 minutes, 07 secondsJoshua Feder, MD, and Mara Goverman, LCSW, have disclosed no relevant financial or other interests in any commercial companies pertaining to this educational activity.
“I can't be the only one who feels this way.” That was the thought that led Kate Swenson to use her passion for writing to share her family's journey. Kate is the founder of Finding Cooper's Voice and the author of Finding Cooper's Voice and Autism Out Loud. Her work highlights that autism is a family diagnosis, and she has made it her mission to connect the community, start conversations, and give families a voice.Kate and I talk about the isolation many families feel after an autism diagnosis and how simple acts of presence and connection can make a difference. Sometimes autism makes it harder for families to leave the house and their world feels smaller—just being there, talking, and offering support can open doors again.We also discuss the importance of creating opportunities for families to spend time together. For Kate's family, that joy is found in boating—something they made accessible for her son and enjoyable for everyone. She encourages families to get comfortable hosting, bringing fun and community into their own homes when going out feels too difficult.Through her writing, her membership communities on Facebook and YouTube, and the platform she has built with Finding Cooper's Voice, Kate is helping families feel seen, supported, and less alone.#autism #speechtherapyWhat's Inside:Creating a space for autism families.Discovering leisure activities for the whole family.Finding community in the isolation of autism.Mentioned In This Episode:Finding Cooper's Voice Finding Cooper's Voice - Facebook Kate (@findingcoopersvoice) on InstagramKate Swenson | Substack Join the aba speech connection ABA Speech: Home
Discover what's possible when art becomes your voice. Whether through visual arts, music, dance, or theatre, art can foster community, self-expression, and personal growth. In today's roundtable discussion, Global Autism Community members share their experiences with art. This roundtable was facilitated by community moderator Adrian Sanchez, and features Autistic Self-Advocates Robert Schmus and Sara van Koningsveld. Among other things, we discuss: Art as a vital outlet for self-expression How creativity can help autistic individuals articulate their feelings Famous autistic artists paving the way for representation in the arts Ways to turn art into a career Imposter syndrome as a common challenge for artists Accessibility in art education Art as a tool for positive change Join us today at community.globalautismproject.org. Let's work together to transform how the world relates to autism. ----more---- We appreciate your time. If you enjoy this podcast and you'd like to support our mission, please take just a few seconds to share it with one person who you think will find value in it too. Follow us on Instagram: @autismpodcast Join our community on Mighty Networks: Global Autism Community Subscribe to our YouTube channel: Global Autism Project We would love to hear your feedback about the show. Please fill out this short survey to let us know your thoughts: Listener Survey
In this episode of 'Why Not Me: Embracing Autism and Mental Health Worldwide,' host Tony Mantor from Nashville, Tennessee, interviews Delise, the author of 'Loving Pieces,' a book series for children on the autism spectrum. Dalisse shares the inspiration behind her books, which are based on real-life experiences and provide visual and practical guidance for various social situations. The discussion focuses on her family's journey, touching on topics like meltdowns, building confidence, bullying, and preparing for the teenage years. Dalisse also talks about the challenges of raising autistic children, the impact of her books on her family, and her desire to offer resources and support to the broader autism community. Introduction to Why Not Me Meet Dalisse: Author of Loving Pieces The Journey of Writing Autism Books Exploring the Themes of the Books Challenges and Realities of Autism Day-to-Day Life and Future Plans Conclusion and Final Thoughts The content on Why Not Me: Embracing Autism amd Mental Health Worldwide, including discussions on mental health, autism, and related topics, is provided for informational and entertainment purposes only. The views and opinions expressed by guests are their own and do not reflect those of the podcast, its hosts, or affiliates.Why Not Me is not a medical or mental health professional and does not endorse or verify the accuracy, efficacy, safety of any treatments, programs, or advice discussed.Listeners should consult qualified healthcare professionals, such as licensed therapists, psychologists, or physicians, before making decisions about mental health or autism- related care.Reliance on this podcast's contents is at the listener's own risk. Why Not Me is not liable for any outcomes, financial or otherwise, resulting from actions taken based on the information provided. Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.
President Donald Trump told the nation this week a common drug has been linked to an increase in autism and ADHD in newborns when used during pregnancy. But for Virginians who are members of and advocate for the autism community, the statement meant something much more. Brad Kutner has this report.
Our Global Autism Community members talk about what affirming means to them, and how masking affects autistic individuals. Welcome to Autism Tips & Tools, where we highlight the best practical guidance from previous episodes of Autism Knows No Borders. Whether you're a self-advocate, a family member, or a service provider, there's something here for you! This roundtable discussion was originally released on October 5, 2023. Would you like to hear about best practices, client dignity, and how to create inclusive environments that respect the autonomy and individuality of autistic individuals? Click the link below for the full conversation and be sure to subscribe to hear more from people connected to autism inspiring change and building community. Neurodiversity-Affirming Practices, with the Global Autism Community Let's work together to transform how the world relates to autism. ----more---- We appreciate your time. If you enjoy this podcast and you'd like to support our mission, please take just a few seconds to share it with one person who you think will find value in it too. Follow us on Instagram: @autismpodcast Join our community on Mighty Networks: Global Autism Community Subscribe to our YouTube channel: Global Autism Project We would love to hear your feedback about the show. Please fill out this short survey to let us know your thoughts: Listener Survey
Welcome to Episode 269 of Autism Parenting Secrets.My guest this week is Jodi Repko, a board-certified family nurse practitioner with over 20 years in medicine and a MAPS-trained provider. Her journey into functional medicine began when her own son developed medically complex issues, igniting her passion to combine functional and traditional medicine.We dive into a related but lesser-known approach to stem cell therapy - exosomes. These tiny messengers from mesenchymal stem cells carry the body's repair signals. They can cross the blood-brain barrier, calm inflammation, and help restore balance - all without introducing live cells.Jodi explains what they are, how they differ from stem cells, and what she's seen in her practice when exosomes are part of a multidisciplinary approach for children with autism.The secret this week is…EXOSOMES Speak the Language of Repair You'll Discover:What Exosomes Are and How They Differ From Full Stem Cell Therapy (3:34)The Three Main Ways Exosomes Work (7:42)The Underlying Issues That Impact Exosome Success (15:32)Practical Considerations Before Starting Exosome Therapy (23:37) About Our Guest:Jodi Repko is the owner and founder of Restore Holistic Center, a functional medicine clinic that takes a multidisciplinary approach to health and healing. A board-certified family nurse practitioner with over 30 years in medicine, Jodi's passion for innovative healthcare was sparked when her son was diagnosed with autism and apraxia. She has worked in regenerative, functional, and biomedical medicine, family practice, women's health, emergency medicine, and complex care, including autism and PANS/PANDAS. Trained through The Medical Academy of Pediatric Special Needs and The Autism Community in Action, she also brings 17 years of experience in adult and pediatric emergency settings, honing her diagnostic and assessment skills. Her personal journey into functional medicine, inspired by her son's complex needs, led her to research, implement, and now specialize in treatments that help restore health and improve quality of life for children and families.https://www.restoreholisticcenter.com/References In This Episode:MAPS – Medical Academy of Pediatric Special Needs: https://medmaps.org/Additional Resources:To learn more about personalized 1:1 support, go to www.elevatehowyounavigate.comTake The Quiz: What's YOUR Top Autism Parenting Blindspot?If you enjoyed this episode, share it with your friends.
As part of the 2025 Developmental Disabilities Conference, Anne V. Kirby, Associate Professor, University of Utah, talks about suicide prevention in the autism community. Series: "Developmental Disabilities Update" [Health and Medicine] [Show ID: 40610]
As part of the 2025 Developmental Disabilities Conference, Anne V. Kirby, Associate Professor, University of Utah, talks about suicide prevention in the autism community. Series: "Developmental Disabilities Update" [Health and Medicine] [Show ID: 40610]
As part of the 2025 Developmental Disabilities Conference, Anne V. Kirby, Associate Professor, University of Utah, talks about suicide prevention in the autism community. Series: "Developmental Disabilities Update" [Health and Medicine] [Show ID: 40610]
As part of the 2025 Developmental Disabilities Conference, Anne V. Kirby, Associate Professor, University of Utah, talks about suicide prevention in the autism community. Series: "Developmental Disabilities Update" [Health and Medicine] [Show ID: 40610]
As part of the 2025 Developmental Disabilities Conference, Anne V. Kirby, Associate Professor, University of Utah, talks about suicide prevention in the autism community. Series: "Developmental Disabilities Update" [Health and Medicine] [Show ID: 40610]
Danny Combs' son, Dylan, was just two when he was diagnosed with autism. Although Dylan wasn't able to say "I love you, Dad" until he was six years old, he had started building complex LEGO sets by himself, with no instructions, three years prior. In speaking with his son's therapists, Danny wanted to highlight the fascinating skills his son possessed — but the primary focus was always on what Dylan couldn't do, not what he could. In response, Danny set out to create a program that focused on the strengths and capabilities of young people with autism — which is how TACT, Teaching the Autism Community Trades, was born. He joins Ben to talk about the incredible impact TACT has had thus far, and why we must fight injustices facing the autism community. Follow Benjamin on X: @BenjaminHallFNC Learn more about your ad choices. Visit podcastchoices.com/adchoices
A Feisty Friday with Sheletta Brundidge features some fun and talk about Sheletta accepting a great award this week for her incredible work benefitting the community of families with autistic children.
In this conversation, Hazel Lim, founder of Chinese Autism UK, shares her journey into the world of neurodiversity, focusing on autism and its intersection with cultural stigmas, particularly within the Chinese community. She discusses the challenges faced by families, the importance of language in shaping perceptions, and the need for advocacy and support networks. Hazel emphasizes the significance of community engagement and the role of initiatives like the Sunflower Hidden Disability Scheme in promoting understanding and accessibility for neurodiverse individuals. Watch the video of this conversation here! https://youtu.be/qNDT7noHVNY Continuing Education Credits (https://www.cbiconsultants.com/shop) BACB: 1.0 Ethics IBAO: 1.0 Cultural QABA: 1.0 Ethics We also offer certificates of attendance! Follow us! Instagram: https://www.instagram.com/behaviourspeak/ Bluesky: https://bsky.app/profile/benreiman.bsky.social.bsky.social LinkedIn: https://www.linkedin.com/in/behaviourspeak/ Contact: Hazel Lim https://www.linkedin.com/in/hazel-lim-uk/ Chinese Autism UK https://chineseautism.org.uk/landing-page/ The Sunflower Hidden Disability Scheme https://chineseautism.org.uk/the-hds-x-cacic-sunflower-lanyard/ Related Behaviour Speak Podcast Episodes Episode 45: Autistic Advocacy with Tiffany Hammond https://www.behaviourspeak.com/e/episode-45-advocating-for-systemic-change-with-tiffany-hammond-of-fidgets-fries/ Episode 174: Autistic and Black with Kala Allen Omeiza https://www.behaviourspeak.com/e/episode-174-autistic-and-black-with-kala-allen-omeiza/ Episode 189: Exploring Intersectionality in Autism Advocacy with Dr. Morénike Giwa Onaiwu https://www.behaviourspeak.com/e/episode-189-dr-morenike-giwa-onaiwu/
In this powerful episode, host Brian Keene welcomes Dr. Martine Laventure, a licensed social worker, mother, and passionate advocate for autism and inclusion. Together, they explore the complexities of navigating an autism diagnosis as a parent, the importance of building a village, and how cultural understanding shapes access to care. Dr. Martine shares her personal journey as a mother to an autistic child, how she uses her lens as a clinician and parent, and offers encouraging, real-world advice for families trying to find their footing. They also discuss disparities in autism care within Black and Brown communities, the importance of culturally competent services, and how to avoid therapy burnout. Key Topics Discussed: - Building your support system and treatment team - Talking to your child and family about autism - Understanding and honoring cultural differences - Self-advocacy and caregiver empowerment - When therapy becomes too much – recognizing the signs of burnout - The need for culturally informed care and inclusive assessments - Encouragement for teens, young adults, and parents to seek support Guest Info: Dr. Martine Laventure is a licensed social worker, school clinician, per diem therapist, and founder of LaVenture Consulting. She offers training and consulting on autism, cultural competence, and family empowerment. She's also releasing a children's book on autism! Connect with Dr. Martine Laventure: - Website: http://laventureconsultant.com - Instagram: @laventure.csllc Resources Mentioned: - ACEs (Adverse Childhood Experiences) - Philadelphia Expanded ACEs Study - Autism education and caregiver advocacy Love this episode? Share it with another parent or therapist who needs to hear it. Don't forget to subscribe and leave us a review on your favorite podcast platform! Connect with Us: - Website: https://www.pureheartstherapy.com - Facebook: https://www.facebook.com/pureheartstherapy - Facebook Group: https://www.facebook.com/groups/autismfamilyresource - Instagram: https://www.instagram.com/purehearts_therapy
Discover what's possible when what you have to say matters. Would you like to share your experiences with like-minded people who can relate to the same struggles? Are you looking for an easy way to form friendships and not feel isolated? If so, you'll want to listen to this episode, where members of our Global Autism Community talk about how being part of our online space has helped them feel support, connection, and a sense of belonging. This week we are celebrating the 5-year anniversary of this podcast, as well as the 4-year anniversary of our online Global Autism Community! It's been an eye-opening journey that continues to surprise, inspire, and move us. We've learned so much from self-advocates sharing their experiences, family members talking about acceptance, and professionals discussing best practices in the field of autism services. We've covered a wide range of topics, such as ableism, bullying, masking, the neurodiversity movement, intersectionality, disability rights, dating, communication, personal growth, cultural humility, and international collaboration, and even controversial topics like person-first vs. identity-first language, the puzzle-piece symbol, and ABA therapy. Five years after launching Autism Knows No Borders, we are more energized than ever to keep going. There are still countless meaningful stories out there, and we want to bring them to you. We will continue to elevate autistic voices. We want their stories to keep traveling across the world, so that more and more people can join us in the cause for autism awareness, acceptance, and hope. A huge thank you to all of our guests for educating us with their unique perspectives, as well as to our team members who keep making this podcast happen: our visual creator, social media manager, and community moderator, Danielle Terrell; our administrative associate, Aldjun Medenilla; and our sound designer and editor, Marc Aliana. And, of course, many thanks to you, our dedicated listeners, for tuning in each week, sharing your takeaways, and ultimately giving meaning to what we're doing. If you're a new listener, we'd like to welcome you as well! Our online Global Autism Community has been growing over the past few years. This is a space where members have the possibility to share insights, listen to different perspectives, and create real change in their own communities – whether they're autistic individuals, family members, or service providers. Special shout out to our community moderators, Danielle Terrell, Hattie-Angelys Fox, Adrian Sanchez, and Bob Schmus. Our moderators monitor posts daily to ensure that our online space remains safe and respectful. If you're interested in joining our moderator team, you can send me a direct message in the community. Last week, some members of our community got together virtually to celebrate our anniversary and reflect on the podcast's impact over the years. Today you'll hear an excerpt from that special event, featuring our CEO Molly Pinney and Autistic Self-Advocates Hattie-Angelys Fox, Amira Collantes, Adrian Sanchez, Mary Johnston, and Corben Havener. ----more---- Are you a self-advocate willing to share your story and educate others? Or a professional seeking to hear directly from autistic voices and improve your practice? Or maybe you're a family member hoping to support and empower your loved one? Whatever your connection to autism is, we'd love to hear your takeaways from this episode in our online Global Autism Community, where hundreds of people from all over the world come together to support each other and know that they're not alone. Join us today at community.globalautismproject.org. Let's work together to transform how the world relates to autism. ----more---- We appreciate your time. If you enjoy this podcast and you'd like to support our mission, please take just a few seconds to share it with one person who you think will find value in it too. Follow us on Instagram: @autismpodcast Join our community on Mighty Networks: Global Autism Community Subscribe to our YouTube channel: Global Autism Project We would love to hear your feedback about the show. Please fill out this short survey to let us know your thoughts: Listener Survey
TODAY ON THE ROBERT SCOTT BELL SHOW: RFK Jr. Attacked, Autism Community Pushes Back, Plastics Disrupt Body Clock, COVID Lab Leak Spotlight, Boletus Laricis, Cancer Recovery Secrets, Emily Sander, The Well Center for Healing, Reviving the Heart of Medicine, Toxic Mattress Warning and MORE! https://robertscottbell.com/rfk-jr-attacked-autism-community-pushes-back-plastics-disrupt-body-clock-covid-lab-leak-spotlight-boletus-laricis-cancer-recovery-secrets-emily-sander-the-well-center-for-healing-reviving-the/
Discover what's possible when you put out the fire before burning out. Are you looking for tips on how to alleviate stress? Stick around, because today's episode is a Global Autism Community roundtable about Stress Management, featuring Autistic Self-Advocates Hattie-Angelys Fox, Adrian Sanchez, Mary Johnston, and Corben Havener. The CEO of the Global Autism Project, Molly Pinney, also joined us at the end. Among other things, we discuss: Various stress triggers, including personal responsibilities, societal pressures, and the impact of social media Effective strategies for managing stress Engaging in self-care practices Creativity as a tool for stress relief Physical activities to improve mental clarity Shifting your perspective through positive thinking The importance of sharing experiences with your community and feeling supported by them ----more---- Are you a self-advocate willing to share your story and educate others? Or a professional seeking to hear directly from autistic voices and improve your practice? Or maybe you're a family member hoping to support and empower your loved one? Whatever your connection to autism is, we'd love to hear your takeaways from this episode in our online Global Autism Community, where hundreds of people from all over the world come together to support each other and know that they're not alone. Join us today at community.globalautismproject.org. Let's work together to transform how the world relates to autism. ----more---- We appreciate your time. If you enjoy this podcast and you'd like to support our mission, please take just a few seconds to share it with one person who you think will find value in it too. Follow us on Instagram: @autismpodcast Join our community on Mighty Networks: Global Autism Community Subscribe to our YouTube channel: Global Autism Project We would love to hear your feedback about the show. Please fill out this short survey to let us know your thoughts: Listener Survey
Send us a textBridget Hampstead shares her journey from discovering her own neurodivergence to founding Fish in a Tree, a virtual community center supporting neurodivergent adults. Her work combines community building, political advocacy, and neuroaffirming practices to create spaces where late-diagnosed autistic individuals can find acceptance and belonging.• Founded Fish in a Tree after realizing neurodivergent people lacked community support• Pivoted from physical center to virtual programming, expanding reach nationwide• Faced challenges with neurodiversity language acceptance in the Deep South• Represented the US at UN's World Autism Awareness Day despite censorship• Increasingly focused on political advocacy as disability rights face new threats• Programming specifically resonates with late-diagnosed autistic women• Writes daily on neurodivergent topics while seeking funding to address critical issuesConnect with Fish in a Tree at www.fishinatreeNOLA.org. You are so loved and a warm welcome awaits you at Fish in a Tree, where we see you, we get you, you are valid and you are the person of honor at our table.https://tonymantor.comhttps://Facebook.com/tonymantorhttps://instagram.com/tonymantorhttps://twitter.com/tonymantorhttps://youtube.com/tonymantormusicintro/outro music bed written by T. WildWhy Not Me the World music published by Mantor Music (BMI)
Discover what's possible when you love yourself first. Do you struggle with expressing love for others, whether in friendships or romantic relationships? Do you ever feel pressure to live up to unrealistic ideas of love as represented in the media? How would you describe your own relationship with yourself? If you'd like to hear about the many facets of love, particularly in the context of autism and neurodiversity, stick around for today's episode. The following roundtable about Defining Love was facilitated by Global Autism Community moderator Bob Schmus, and it features Autistic Self-Advocates Hattie-Angelys Fox and Adrian Sanchez, as well as community member Danielle Terrell. Among other things, they discuss: Personal definitions of love and its various forms Challenges of expressing love The impact of media on perceptions of love Self-love as a foundation for healthy relationships The complexities of love in neurodivergent communities Wanting vs. needing someone Respecting differences in relationships Accepting one's own autism Love from parents to children ----more---- Are you a self-advocate willing to share your story and educate others? Or a professional seeking to hear directly from autistic voices and improve your practice? Or maybe you're a family member hoping to support and empower your loved one? Whatever your connection to autism is, we'd love to hear your takeaways from this episode in our online Global Autism Community, where hundreds of people from all over the world come together to support each other and know that they're not alone. Join us today at community.globalautismproject.org. Let's work together to transform how the world relates to autism. ----more---- We appreciate your time. If you enjoy this podcast and you'd like to support our mission, please take just a few seconds to share it with one person who you think will find value in it too. Follow us on Instagram: @autismpodcast Join our community on Mighty Networks: Global Autism Community Subscribe to our YouTube channel: Global Autism Project We would love to hear your feedback about the show. Please fill out this short survey to let us know your thoughts: Listener Survey
Join Dr. Mary Barbera for an inspiring conversation with three incredible autism advocates: Kate Swenson of Finding Cooper's Voice, Adrian Wood from Tales of an Educated Debutante, and Carrie Cariello. We dive into their powerful new book Autism Out Loud: Life with a Child on the Spectrum from Diagnosis to Young Adulthood, where they share deeply personal stories of raising children with autism. Through their diverse experiences, they provide insight into topics like caregiving, anxiety, independence, and the unique challenges of young adulthood. This conversation offers support and valuable strategies for navigating life with autism.
Episode Overview In this solo episode, I dive into a topic that's been weighing on my heart—validation in the autism community. There's a growing divide between those who see autism as a superpower and those who experience it as a significant disability. Both perspectives are valid, but we need to recognize that no single experience defines autism. Key takeaways: Autism exists on a vast spectrum, and no two experiences are alike. Some individuals thrive and see autism as a strength, while others face profound challenges. We must validate and respect all perspectives without dismissing or diminishing anyone's experience. Parents and autistic individuals alike should be able to share their personal journeys without fear of judgment. Unity within the autism community is crucial to advocating for better understanding and support. Why This Matters Many parents and autistic individuals feel unseen when their experiences are dismissed. Whether autism is empowering or disabling, every perspective matters. By supporting each other and allowing diverse narratives to coexist, we can create a more inclusive and understanding world. Resources and Links Connect with me: TheAutismDad.com Join my private parenting support group: theautismdad.com/support Listen Now: Apple Podcasts | Spotify | Podcast Website Want to Sponsor or Be a Guest? Contact me at theautismdad.com/contact. Let's continue this conversation. What's your experience with validation in the autism community? Drop your thoughts in the comments or tag me on social media. New episodes drop weekly. Subscribe and leave a review if this episode resonated with you. Follow on social media: Instagram | Facebook Thanks for tuning in. See you next week. This Week's Sponsor: Safe Place Bedding If you're looking for a safe, comfortable, and travel-friendly sleeping solution for your autistic child, check out Safe Place Bedding. Their durable, inflatable safety beds help create a secure sleep environment at home or on the go. Designed by special needs parents, these beds offer peace of mind and better rest for the whole family. Learn more and shop now at SafePlaceBedding.com.
Discover what's possible when you stick to healthy habits. The start of a new year usually motivates people to realign priorities and establish new routines. Some even pick a guiding word for the year to provide focus. What intentions did you set at the beginning of 2025? Are you staying on track to reach your goals? If you'd like to learn about creating and maintaining habits, stick around for today's episode. The following roundtable was facilitated by Global Autism Community moderator Danielle Terrell, and it features Autistic Self-Advocates Hattie Angelys-Fox, Bob Schmus and Eren Neiderhoffer. Among other things, they discuss: Strategies to set and achieve goals for the new year, which can actually be applied at any other time The importance of community Finding accountability partners and support systems Setting boundaries for well-being ----more---- Are you a self-advocate willing to share your story and educate others? Or a professional seeking to hear directly from autistic voices and improve your practice? Or maybe you're a family member hoping to support and empower your loved one? Whatever your connection to autism is, we'd love to hear your takeaways from this episode in our online Global Autism Community, where hundreds of people from all over the world come together to support each other and know that they're not alone. Join us today at community.globalautismproject.org. Let's work together to transform how the world relates to autism. ----more---- We appreciate your time. If you enjoy this podcast and you'd like to support our mission, please take just a few seconds to share it with one person who you think will find value in it too. Follow us on Instagram: @autismpodcast Join our community on Mighty Networks: Global Autism Community Subscribe to our YouTube channel: Global Autism Project We would love to hear your feedback about the show. Please fill out this short survey to let us know your thoughts: Listener Survey
This weekend's 1 in 36 guest is Alex K. Lin. Alex is the co-founder of Autism Rocks, a nonprofit concert event founded along with Ned Specktor in 2016. Their main mission is to de-stigmatize any stereotypes people have on the Autism community by filling the concert with performances by musicians with Autism Spectrum Disorder, and by shedding a light on the bullying epidemic happening within the Autism Community. Alex also discusses his Instagram live show - "Issues at Hand". Tune in to learn more or visit: https://www.autismrocksevents.org/
Discover what's possible when every change brings a new opportunity. Do you struggle with social engagements during the holiday season? What boundaries do you set in order to preserve your mental well-being? If you'd like to learn how to navigate the challenges of seasonal shifts, stick around for today's episode. The following roundtable was facilitated by Global Autism Community moderator Hattie Angelys Fox, and it features Autistic Self-Advocates and new community moderators Bob Schmus and Adrian Sanchez. Among other things, they discuss: Transitioning from summer to winter The challenges and joys of the holiday period How to balance your social interactions The importance of identifying and setting personal boundaries Sharing food and cultural traditions to enhance community bonds Preparing for travel during the busy holiday period Strategies to maintain mental well-being throughout seasonal changes ----more---- Are you a self-advocate willing to share your story and educate others? Or a professional seeking to hear directly from autistic voices and improve your practice? Or maybe you're a family member hoping to support and empower your loved one? Whatever your connection to autism is, we'd love to hear your takeaways from this episode in our online Global Autism Community, where hundreds of people from all over the world come together to support each other and know that they're not alone. Join us today at community.globalautismproject.org. Let's work together to transform how the world relates to autism. ----more---- We appreciate your time. If you enjoy this podcast and you'd like to support our mission, please take just a few seconds to share it with one person who you think will find value in it too. Follow us on Instagram: @autismpodcast Join our community on Mighty Networks: Global Autism Community Subscribe to our YouTube channel: Global Autism Project We would love to hear your feedback about the show. Please fill out this short survey to let us know your thoughts: Listener Survey
Dr. Mary Barbera sits down with Kaelynn Partlow, an autistic therapist, author, and advocate, to discuss her inspiring journey from being diagnosed with autism at age ten to becoming a Registered Behavior Technician (RBT) and public speaker. Kaelynn shares her experiences navigating the challenges of autism, her work at the Project Hope Foundation, and how she uses social media to advocate for inclusion and understanding. She also discusses her new book, Life on the Bridge, her appearance on Netflix's Love on the Spectrum, and her views on ABA therapy. Listen as we explore Kaelynn's remarkable contributions to the autism community and her ongoing efforts to bridge the gap between neurotypical and autistic individuals.
Discover what's possible when social engagement and self-care are balanced. Do you find it challenging to be surrounded by too many people? What do you prefer: spending time alone or with others? Or do you just struggle to make deeper connections? If any of this resonates with you or anyone you know, stick around for today's episode. The following roundtable is about Isolation vs Community. It was facilitated by Autistic Self-Advocate and Global Autism Community moderator Hattie-Angelys Fox, and it features Autistic Self-Advocates Adrian Sanchez and Eren Niederhoffer. Our Global Autism Community is an online space where anyone connected to autism can share their perspectives on various topics. Among other things, they discuss: Isolation as a restorative choice The dual nature of isolation How slowing down can help you to understand yourself Tools to balance community and self-care Navigating social situations and the role of humor in connecting with others Public spaces as a neutral ground for social interactions Trust as a prerequisite to meaningful relationships Cultural sensitivity in communication and humor The importance of self-time for mental and emotional well-being Observing social dynamics to enhance one's ability to connect ----more---- Are you a self-advocate willing to share your story and educate others? Or a professional seeking to hear directly from autistic voices and improve your practice? Or maybe you're a family member hoping to support and empower your loved one? Whatever your connection to autism is, we'd love to hear your takeaways from this episode in our online Global Autism Community, where hundreds of people from all over the world come together to support each other and know that they're not alone. Join us today at community.globalautismproject.org. Let's work together to transform how the world relates to autism. ----more---- We appreciate your time. If you enjoy this podcast and you'd like to support our mission, please take just a few seconds to share it with one person who you think will find value in it too. Follow us on Instagram: @autismpodcast Join our community on Mighty Networks: Global Autism Community Subscribe to our YouTube channel: Global Autism Project We would love to hear your feedback about the show. Please fill out this short survey to let us know your thoughts: Listener Survey
Getting an autism evaluation for a child can be a daunting process, fraught with long waitlists, high out-of-pocket costs, and navigating complicated systems. Every moment matters when it comes to early intervention, and Dr. Michael Perisa of Zest Pediatrics is working to simplify the journey for families.Zest Pediatrics, the first pediatric direct primary care network in the country, offers a membership-based model that removes many of the headaches families face with traditional primary care. By operating outside of insurance restrictions, Zest Pediatrics delivers care in a way that prioritizes what children truly need, without delays or limitations.Dr. Perisa and his team across Zest Pediatrics are uniquely equipped to provide timely autism evaluations. With specialized training and the flexibility to focus on individual patients, they can intervene quickly to ensure children are seen and supported. An autism evaluation at Zest Pediatrics includes a comprehensive history intake, a behavioral assessment, and a standardized questionnaire, all analyzed to determine a diagnosis or not.Because Zest Pediatrics doesn't bill insurance, they offer evaluations at a flat rate of $1,250 and are actively collaborating with communities and therapy centers to help reduce financial burdens for families. If you have concerns about your child and need a faster path to evaluation, visit zestpeds.com/autism to learn more.Speaking with Dr. Michael Perisa highlighted the importance of making care more accessible for children and families navigating autism concerns. Early intervention is critical, and Zest Pediatrics is paving the way for better, more efficient solutions. #autism #speechtherapy What's Inside:The challenges of getting an Autism EvaluationWhat is a Pediatric Direct Primary Care Network?How does Zest Pediatrics serve the Autism Community?The cost and components of an Autism Evaluation.Mentioned In This Episode:Zest Pediatric Network Autism - Zest Pediatric Network ABA Speech: HomeJoin the aba speech connection membership
Discover what's possible when you give to transform lives. This episode is being released a day early in observance of Thanksgiving in the US. ----more---- Each year our team reflects on what we're grateful for. First of all, we're grateful for you, our listeners, and your continued support. We're also grateful for our podcast guests and their willingness to share their story with us. And of course, we're grateful for our growing Global Autism Community, whose members keep showing up in our online space with commitment to our mission to transform how the world relates to autism. We're also grateful for our larger community of generous donors who help make our work at the Global Autism Project possible. If you'd like to directly support our programs and initiatives, and help us to improve the quality of life of autistic individuals and their families around the world, stay with us for this episode, where our CEO Molly Ola Pinney explains how you can get involved as a monthly-giving Compass member. You'll also hear a few excerpts from members of our Global Autism Community sharing their personal gratitudes. In other news, we also wanted to let you all know that our host Rachel will be going on maternity leave for a few months, starting in December. We'll still be releasing episodes featuring our Global Autism Community roundtable discussions, as well as throwbacks with relevant insights which we think are worth bringing back from the early days of the podcast. And of course, as tradition follows, we'll soon review and celebrate the year with our 2024 highlights episode. For now, we hope that this Thanksgiving special will inspire you to reflect on what you're grateful for during this holiday season. From all of us at the Global Autism Project, we wish you a Happy Thanksgiving, and hope you can spend some time with your loved ones this weekend. ----more---- Become a Compass member today and create sustainable change around the world! Every contribution leaves a meaningful impact and expands our reach to underserved communities worldwide. Click here to join Compass! ----more---- We appreciate your time. If you enjoy this podcast and you'd like to support our mission, please take just a few seconds to share it with one person who you think will find value in it too. Follow us on Instagram: @autismpodcast Join our community on Mighty Networks: Global Autism Community Subscribe to our YouTube channel: Global Autism Project We would love to hear your feedback about the show. Please fill out this short survey to let us know your thoughts: Listener Survey
Discover what's possible when you find the right provider. Have you ever struggled to navigate the healthcare system? Autistic individuals often have their own set of challenges when dealing with accessing medical services. If you'd like to learn about your rights as a patient, and how you can advocate for your individual needs, stick around for today's episode. The following roundtable about Healthcare Preparation and Advocacy was facilitated by Global Autism Community moderator Danielle Terrell, and it features Autistic Self-Advocates Amy Smith and Sara van Koningsveld. Among other things, they discuss: The complexity of health insurance plans The evolving landscape of telehealth How technology can help you organize and track your healthcare information Tools to help manage sensory challenges in overwhelming environments The importance of having a support person with you in medical settings Why all healthcare providers should get continuing education about disability awareness Tips to effectively communicate with your healthcare provider ----more---- Are you a self-advocate willing to share your story and educate others? Or a professional seeking to hear directly from autistic voices and improve your practice? Or maybe you're a family member hoping to support and empower your loved one? Whatever your connection to autism is, we'd love for you to join our next roundtable in our online Global Autism Community, where hundreds of people from all over the world come together to support each other and know that they're not alone. Join us today at community.globalautismproject.org. Let's work together to transform how the world relates to autism. ----more---- We appreciate your time. If you enjoy this podcast and you'd like to support our mission, please take just a few seconds to share it with one person who you think will find value in it too. Follow us on Instagram: @autismpodcast Join our community on Mighty Networks: Global Autism Community Subscribe to our YouTube channel: Global Autism Project We would love to hear your feedback about the show. Please fill out this short survey to let us know your thoughts: Listener Survey
Discover what's possible when you embrace your true identity. Are you a late-diagnosed autistic person, or do you know someone who is? If this resonates with you, you'll want to listen to today's conversation, where we touch on how acceptance of one's autism can change over time. The following Global Autism Community roundtable was facilitated by community moderator Hattie-Angelys Fox, and it features Autistic Self-Advocates Brian MIddleton, Corben Havener, Mary Johnston, Bob Schmus, Amira Collantes, and Adrian Sanchez, as well as community moderator Danielle Terrell. Among other things, we discuss: Finding out about an autism diagnosis at different stages in life How autism presents differently in males and females Whether language matters when identifying as autistic Common challenges that autistics experience in childhood –like socialization, anxiety, and depression– and how to deal with them Whether masking is ever good Disclosing your autism with friends and family The Pathology Paradigm ----more---- Are you a self-advocate willing to share your story and educate others? Or a professional seeking to hear directly from autistic voices and improve your practice? Or maybe you're a family member hoping to support and empower your loved one? Whatever your connection to autism is, we'd love to hear your takeaways from this episode in our online Global Autism Community, where hundreds of people from all over the world come together to support each other and know that they're not alone. Join us today at community.globalautismproject.org. Let's work together to transform how the world relates to autism. ----more---- We appreciate your time. If you enjoy this podcast and you'd like to support our mission, please take just a few seconds to share it with one person who you think will find value in it too. Follow us on Instagram: @autismpodcast Join our community on Mighty Networks: Global Autism Community Subscribe to our YouTube channel: Global Autism Project We would love to hear your feedback about the show. Please fill out this short survey to let us know your thoughts: Listener Survey
Discover what's possible when your environment fits your needs. Do you struggle with organizing your physical space? Or have you found systems that work well for your needs? Organization can be a sensitive topic, especially if you feel any shame for not being as organized as you'd want to be. If you're looking for tips on how to design a space that works for you, stick around, because today's episode is a Global Autism Community roundtable discussion about Organizational and Environmental Management, featuring Autistic Self-Advocates Hattie-Angelys Fox, Amira Collantes, Adrian Sanchez, and Eren Denburg, as well as community member Cheryl Albright. Among other things, we discuss: Decluttering small vs large spaces Organizational styles to support executive-functioning skills How to find tools and systems that work for your brain Sharing spaces with others who have organizational styles different from yours Micro- vs macro-organization How to let go of things that no longer serve you ----more---- Would you like to share your own perspectives by participating in roundtables like this one? Join our online Global Autism Community, a safe and judgment-free space where all kinds of people connected to autism regularly discuss important topics like autistic identity, dating on the spectrum, coping strategies, and many, many more. We'd love to see you over at community.globalautismproject.org. ----more---- We appreciate your time. If you enjoy this podcast and you'd like to support our mission, please take just a few seconds to share it with one person who you think will find value in it too. Follow us on Instagram: @autismpodcast Join our community on Mighty Networks: Global Autism Community Subscribe to our YouTube channel: Global Autism Project We would love to hear your feedback about the show. Please fill out this short survey to let us know your thoughts: Listener Survey
Discover what's possible when you're prepared for the environment. Are you or anyone you know either over-sensitive or under-sensitive to specific sights, sounds, smells, or textures? While this can sometimes be an asset, it can also cause distress or discomfort. If you're familiar with difficulties in processing everyday sensory information, stick around, because today's episode is a roundtable discussion where we talk about Sensory Challenges, featuring Autistic Self-Advocates Hattie-Angelys Fox, Amy Smith and Adrian Sanchez, as well as fellow members of our online Global Autism Community, Cheryl Albright, Tj Larum and Danielle Terrell. Among other things, we discuss: Human sensory systems and needs Hyper- and hypo-sensitivities Levels of burnout and how to recover from it Regulatory strategies for various environments and situations Teaching children how to cope and ask for help Examining someone's overall health to support their sensory issues The importance of collaborating with specialists when writing treatment plans Speech processing and interpreting Supports across the lifetime Sensory Differences - A Guide for All Audiences ----more---- Are you a self-advocate willing to share your story and educate others? Or a professional seeking to hear directly from autistic voices and improve your practice? Or maybe you're a family member hoping to support and empower your loved one? Whatever your connection to autism is, we'd love to hear your takeaways from this episode in our online Global Autism Community, where hundreds of people from all over the world come together to support each other and know that they're not alone. Join us today at community.globalautismproject.org. Let's work together to transform how the world relates to autism. ----more---- We appreciate your time. If you enjoy this podcast and you'd like to support our mission, please take just a few seconds to share it with one person who you think will find value in it too. Follow us on Instagram: @autismpodcast Join our community on Mighty Networks: Global Autism Community Subscribe to our YouTube channel: Global Autism Project We would love to hear your feedback about the show. Please fill out this short survey to let us know your thoughts: Listener Survey
Discover what's possible when the student has a seat at the table. You might have heard the saying, “Nothing about us without us.” This expression has its origins in Central European political traditions and became popular in disability activism during the 1990s. According to the United Nations, it relies on the principle of full participation, and it has been used by disabled people's organizations throughout the years as part of the global movement to equalize opportunities for, by, and with persons with disabilities. In today's episode, you'll hear about how “Nothing about us without us” can be applied in special education settings. This Global Autism Community roundtable discussion was led by Michael Gilberg, an autistic special-education and disability-rights attorney based in New York and Connecticut. Other participants were Autistic Self-Advocates Sara Bradford, Corben Havener, Mary Johnston, Jonathan Gardner, and Sara van Koningsveld, as well as fellow community members, Nancy Gardner, Colleen Dorsey, Tj Larum and Danielle Terrell. Among other things, we discuss: What is special education Social-emotional learning The difference between an Individualized Education Program and a 504 How attorneys and advocates can support parents The importance of including students at school meetings about them Are you a self-advocate willing to share your story and educate others? Or a professional seeking to hear directly from autistic voices and improve your practice? Or are you a family member hoping to support and empower your loved one? Whatever your connection to autism is, we'd love to hear your takeaways from this episode in our online Global Autism Community, where hundreds of people from all over the world come together to support each other and know that they're not alone. Join us today at community.globalautismproject.org. Let's work together to transform how the world relates to autism. ----more---- We appreciate your time. If you enjoy this podcast and you'd like to support our mission, please take just a few seconds to share it with one person who you think will find value in it too. Follow us on Instagram: @autismpodcast Join our community on Mighty Networks: Global Autism Community Subscribe to our YouTube channel: Global Autism Project We would love to hear your feedback about the show. Please fill out this short survey to let us know your thoughts: Listener Survey
Send us a Text Message.How does an autistic individual navigate life's challenges to find joy and purpose in a supportive community? Join us on this episode of "Why Not Me? The World Podcast" as we welcome Joe Gilotti, a remarkable man who has turned his diagnosis of Asperger's into a journey of resilience and triumph. Joe takes us back to his childhood, sharing the hurdles he faced during his school years and the bullying that tested his resolve. With the support of his family and the nurturing environment at Winston Preparatory School, Joe found his footing and began to thrive. The Prospector Theater isn't just a place of employment for Joe, it's a cornerstone of his personal growth. We hear about the heartwarming moments that make the theater a beacon of inclusivity, like the joy of a young employee with Down syndrome celebrating her new job. Joe's nearly decade-long journey at the theater saw him evolve from working in embroidery to running a small business and exploring his passion for graphic design and cosplay. The theater's mission of providing meaningful employment to people with disabilities has profoundly shaped Joe's life, giving him the confidence to live independently and fostering a deep sense of acceptance and friendship.Our conversation wraps up with a look at the vibrant community and strong sense of camaraderie that makes the Prospector Theater so unique. Joe shares the theater's origin story and its mission-driven culture, emphasizing the importance of inclusive employment opportunities. As we conclude this heartfelt episode, we express our immense gratitude to Joe for sharing his extraordinary journey. We invite our listeners to connect with us for more inspiring stories and to consider how they, too, can make a difference in their communities.https://tonymantor.comhttps://Facebook.com/tonymantorhttps://instagram.com/tonymantorhttps://twitter.com/tonymantorhttps://youtube.com/tonymantormusicintro/outro music bed written by T. WildWhy Not Me the World music published by Mantor Music (BMI)
Welcome back to America's #1 Daily Podcast, featuring America's #1 Real Estate Coaches and Top EXP Realty Sponsors in the World, Tim and Julie Harris. Ready to become an EXP Realty Agent and join Tim and Julie Harris? Visit: https://whylibertas.com/harris or text Tim directly at 512-758-0206. IMPORTANT: Join #1 Real Estate Coaches Tim and Julie Harris's Premier Coaching now for FREE. Included is a DAILY Coaching Session with a HARRIS Certified Coach. Proven and tested lead generation, systems, and scripts designed for this market. Instant FREE Access Now: YES, Enroll Me NOW In Premier Coaching https://premiercoaching.com Pavan Agarwal is a seasoned investor, entrepreneur, and banker who has been revolutionizing the dichotomous real estate and financial market by engineering exciting new Ai technologies. Pavan has a unique set of skills and experience in that, as a child while he wrote his first Ai program in 1985, he was also helping the family build their real estate portfolio and eventually helped grow the mortgage business founded by his father, the late Hari Agarwal, to a multi-billion-dollar national mortgage lender and servicer. As a first-generation immigrant, Pavan knows what homeownership aspirations mean and how daunting the process can be - from finding a house to call home to being able to obtain financing at an affordable rate. This is why, as he grew Sun West Mortgage to serve consumers across the country, he continuously engineered the underlying operations and invested in technology to reduce costs, improve efficiency, and deliver a better customer experience. In Angel Ai - the world's first fintech Ai companion - Pavan has successfully shown how he has neutralized complex, discriminatory, and convoluted traditional business processes which are pervasive throughout financial services. Today, Pavan is leading the industry by breaking down the barriers to homeownership, through simplicity, fairness, and empathy. With Angel Ai's TRU Approval®, Pavan walks the talk, as his mortgage company, Sun West, fully warrants the decisions delivered by Angel Ai. And, this exciting Ai technology is available to everyone without exception - Realtors®, mortgage brokers, the competition, and most importantly, the consumer. Over the last four decades, the real estate and financial markets have experienced some major crises. However, Pavan has not only steered Sun West through these challenging markets but has continued to help homeowners realize their dreams while delivering value to his shareholders. Pavan lives for his family. He is proud of his wife, Preeti, who is his rock and serves as the Vice-President of Marketing. During his leisure time, you will find him snowboarding around black diamond peaks, riding the neighborhood bike trail, or playing tag and goofing off with his kids. Pavan has been featured on Forbes, Fortune, Bloomberg, Yahoo, and Fox Business and was nominated for the national philanthropy award in 2022 for his work with The Autism Community in Action (TACA). His life's mission is to create a pathway for all Americans to realize their financial goals and live their American dream. HUGE Announcement: You will love this! Looking for the full outline from today's presentation? Our DAILY Newsletter featured lead generation systems, real estate scripts, daily success plans and (YES) the notes or today's show. Best part? The newsletter is free! https://harrisrealestatedaily.com/
When Anna Kennedy OBE speaks, you can't help but be moved by the power of a mother's love and the strength it takes to move mountains for her children. Join us as Anna Kennedy shares her deeply emotional and empowering journey of raising two autistic sons, Patrick and Angelo. Her candid recollections—from confronting a world that lacked autism awareness to the life-affirming accomplishments of her children—offer a beacon of hope to any parent walking a similar path. In a conversation that is both eye-opening and heartwarming, we navigate the challenges and triumphs within the autism community. We discuss the indispensable role of smaller charities that offer a lifeline to families, the critical importance of early intervention, and the nuances that make each autistic individual beautifully unique. Anna's story embodies the tenacity and advocacy that it takes to find the right support and to stand firm against those who might dismiss or misunderstand the needs of those with autism.The episode wraps up with a celebration of achievements and the supportive network that exists within the autism community. We indulge in the success of heartening events such as Autism's Got Talent and the Autism Hero Awards, while also emphasizing the value of shared experiences. The warmth and encouragement found in these stories shine a light on the significance of understanding, connection, and acceptance, reminding us all that within the intricate tapestry of autism, no one is ever alone.https://tonymantor.comhttps://Facebook.com/tonymantorhttps://instagram.com/tonymantorhttps://twitter.com/tonymantorhttps://youtube.com/tonymantormusicintro/outro music bed written by T. WildWhy Not Me the World music published by Mantor Music (BMI)