My Autism Tribe

Have you seen the documentary "Inside Our Autistic Minds" yet? Cameron and Susan Mills break down the first episode of Peacock's/BBC's docuseries, and the emotional rollercoaster of watching it. The host of the documentary, Chris Packham, was diagnosed with autism as an adult, and he wants to provide a voice and platform to others so that our world can better understand the complexities and emotional journeys of autism. You don't want to miss it!

Hey everyone, In our last episode, my husband and I discussed how our family introduced a medical-grade probiotic called Neuralli into our home exactly one year ago. Since then we have experienced significant positive results and we wanted to share our experience. One today's show, I actually will be speaking with the Chief Science Officer from Bened Life Dr. Noelle Patno. Bened Life is on the leading edge of microbiome and health science innovation, producing effective and safe microbiome solutions for unmet neurological and mental health needs.  PS128, the sole probiotic strain in Bened Life's Neuralli Medical Probiotic, has been the subject of 12 human clinical studies across four categories - neurodevelopment,neurodegeneration, mental health, and exercise performance. It was shown to help balance serotonin, dopamine, cortisol, and other molecules that affect mood, mind,and movement, while also helping regulate gastrointestinal tract health.  Noelle Patno, PhD, Bened Life's chief science officer, discusses these key points: - L. plantarum PS128 is not available in fermented foods like sauerkraut or yogurt. According to global definitions of fermented foods, they should contain at least 1million CFU of microbes per gram of food.  - In preclinical models that had lowered levels of dopamine or serotonin in the brain, oral administration of L. plantarum PS128 resulted in increasing levels ofserotonin and dopamine in the brain. - L. plantarum PS128 has been shown to benefit autistic individuals in four clinical trials.  Gut-brain axis communication is bidirectional – meaning the gut and brain talk to each other vs one-way communication – which helps regulate gut function as well asoverall behavior – including mood, stress, sleep, focus, and more.  Extra interventions may be needed for those who aren't getting everything they need through diet, sleep, and exercise.  That's where Bened Life and PS128 come in.  SPECIAL NOTE: THIS IS NOT A PAID SPONSORSHIP, ONLY A PERSONAL EXPERIENCE.

THIS IS NOT A PAID ADVERTISEMENT OR SPONSORSHIP. THIS IS A PERSONAL EXPERIENCE. Susan Mills and her husband Cameron Mills have a candid conversation about a new medical-grade probiotic their son (and occasionally Cameron) is taking with amazingly positive results. www.BenedLife.com has a probiotic Neuralli that is being used by many for neurological disorders such as Autism Spectrum Disorder, Parkinson's Disease, and ADHD. Listen to how it is helping to improve certain qualities of life.   FROM BENED LIFE: "The trillions of microorganisms inside your gut play a crucial role in healthy gastrointestinal function and in your overall health. Scientists have long known about the link between the microbiome, inflammation and the immune system. Now we know that a healthy microbiome can also lead to a healthier brain. L. plantarum PS128 in Neuralli can have neurological health benefits without ever leaving the inside of your intestine - bringing the body into balance, naturally. Unlike pharmaceuticals, which can overpower the body's natural functions, Neuralli works WITH your body and your microbiome to gently adjust imbalances."

Have you ever had a private celebration when discovering something about your child, but then had to discipline them? Susan Mills and her husband Cameron Mills lovingly share a funny story about a time when their son disobeyed his teacher.

Is there such a thing as a "standardized student"? What happens when your child on the spectrum takes a standardized test, but fails to understand questions that are more "gray" in nature? Listen as Susan Mills and her husband Cameron discuss why changes need to be made at state levels for neurodiverse students.

Hi, friends! Thanks so much for joining me on this podcast! I feel like each time I do a podcast now, I'm apologizing for not being consistent in the recordings. I was doing so well before COVID, and even early on during the pandemic.  Then what happened? Well, virtual school happened, my work life was thrown upside down on its head, and I started experiencing extreme anxiety. I've battled with anxiety for nearly all of my life, but everything really just imploded.  I had to take a step back to focus on getting healthy, being there for my family, and keeping my business afloat. It was a lot, but I feel like we're on the other side and I've been able to start getting back into the swing of things…and have even added a few more projects to my plate. Not sure my mother agrees with this, but these projects are ones that feed my soul, and give me energy…so that's good, right? So, I wanted to take some time to do a reintroduction and an update on what has actually been going on. There are so many exciting things happening, and I really do feel like there has been a shift in mindset. I live in Kentucky with my amazing husband Cameron, and the beat of my heart, my son, Alex. He's NINE years old now and in the third grade. That sounds so unreal. I'm not sure where all the time is going! Several months ago, My Autism Tribe hosted an event at one of our local hotels in the community. It was just a fun event, but while having fun, we also educated our community about the autism spectrum, and Alex even took the microphone, introduced himself, and we shared some back-and-forth Q&A. I had absolutely no expectations on how the evening would go, but there were so many great questions asked, relationships that were developed, and Alex was amazing! So that kinda kicked off our reintroduction with the nonprofit. Then, another amazing thing happened! We were connected with a local sheriff's department wanting to provide autism training to their officers. So, after a few meetings and several months later, My Autism Tribe partnered with them to create a video series that can be uploaded into their system so that officers can watch them in their spare time. Why is this important? Well, you can't take all the officers off the road at the same time to conduct in-person training, so with the videos, all of them can still participate in the training…which is absolutely critical in the education and awareness of how first responders need to provide service in emergency situations with those on the spectrum. And because of this partnership, we have also now been contacted with other surrounding counties to provide the same. And if any of you listening know of someone that would like more information on how we created the video segments, reach out and let us know! On a slightly different path, but with the passion coming from the same place and the inspiration being my son, I've also been working on creating a children's book series. It all started about four years ago, when I wrote a couple of stories for my son to help explain differences and challenges he was experiencing. I was told by several people that I should write more, so I did. Well, this eventually led to the creation of this series called DinoSprout, and is published by Rainbow Sparrow Books. Through the DinoSprout book series, the overall mission is to provide children, parents AND teachers/therapists with resources that cultivate healthy conversations. I really wanted a way to provide children with a mirror and a window into the special needs world. A mirror would provide children with special needs to see and learn about themselves, and a window would provide children without certain special needs to learn about others. And it's an A-Z collection of dinosaurs! So you have the first two books, “Stella, the Sweet and Spunky Stegosaurus”, and Toby, the Terrific and Talented T-Rex”. Stella is nonverbal, Toby has sensory processing challenges, and other dinosaurs in the A-Z are also woven through each story. Drew the Dyrosaurus has ADHD, Brody the Brachiosaurus has a brace on his leg, Alex the Allosaurus has anxiety, Hadley the Hadrosaurus has food allergies. You get the idea. I researched illustrators for over a year, and then my husband finally said, “Why don't you illustrate them yourself??” I do paint, but my paintings look nothing like a children's illustration, but I thought I would give it a whirl. I wanted the books to be fun, simple, with drawings that children could easily connect with. Think of Pete the Cat. My son loved those books, and illustrations. So, over a year later we have released the first two books on Amazon, AND I've even partnered up with a Ph.D. professor Sarah Hawkins-Lear to create educational activities and curriculum that teachers can incorporate into the educational environments. It's something that I'm not only extremely proud of, but am also so passionate about. We need to start these conversations at a young age! I've visited several classrooms, and it's amazing to see the children have these AHA! Moments. Hearing things like “I know someone that has to use headphones”, “My sister can't say words”, “Sometimes I don't know how to make friends”. I've literally left classrooms and have cried. These children are yearning for connections, and they really do want to be inclusive! It's the crazy world around us, and sadly some of the home environments, that turn this behavior in other directions. So, we need to reach them young, and reach them when they are hungry for positive relationships! The books are for ages 3-8ish, so if you or anyone else would like more information, check ‘em out! Stella and Toby are both on Amazon, or you can go to RainbowSparrowBooks.com for more information as well. I'm planning on having Sarah, the professor that I'm working with, on a podcast as well so she can share how they are being integrated. She's a wealth of information, and such an amazing human being. I'll provide some links in the show notes. Thank you so much for allowing me to join you today. Reach out to me on social media, send me a note, ask a question. I really do want to be with you on your journey, and I would love to have you as part of my tribe. We all need one. Love each and every one of you. Be well, and I'll speak with you soon! www.RainbowSparrowBooks.com Books Currently on Amazon: Stella, the Sweet and Spunky Stegosaurus: https://www.amazon.com/Stella-Spunky-Stegosaurus-DinoSprout-Educational/dp/B0BJCCQ78Y/ref=sr_1_1?crid=23FD15EC1YLCO&keywords=stella+the+sweet+%26+spunky+stegosaurus&qid=1671226104&sprefix=%2Caps%2C83&sr=8-1 Toby, the Terrific and Talented T-Rex: https://www.amazon.com/Terrific-Talented-T-Rex-DinoSprout-Educational/dp/B0BJY55BTX/ref=sr_1_1?crid=1ACEXIPO6KABD&keywords=toby%2C+the+terrific+and+talented+t-rex&qid=1671226113&sprefix=%2Caps%2C190&sr=8-1

EPISODE 70: The Building Blocks Program is an individualized behavior program to help support children with autism. Marshall Pediatric Therapy offers both a comprehensive and collaborative approach to your child's therapeutic treatment with a focused-based model.

EPISODE 69: Thanks so much for joining us today! My husband, Cameron Mills, will be co-hosting with me as we discuss the most recent big four-letter word in our home this year. It's not what you think. It's R-A-I-N, and all the challenges it brings to us personally. A trip to an amusement park, how my son is "stretching" himself to grow stronger in dealing with his challenges - we give examples and tell stories. Be sure to check out the My Autism Tribe website at www.MyAutismTribe.org in addition to our social platforms with Facebook, Instagram and Twitter.  

Welcome to My Autism Tribe, an organization of advocates that are educating, supporting and empowering those in our communities. We are one voice made stronger. I'm your host, Susan Mills. Let's talk about the elephant in the room. We haven't done a podcast in awhile. We've essentially been surviving during Covid, but we wanted to get back in the game. My husband, Cameron Mills, joins me on this episode. Check out MyAutismTribe.org for more information, and be sure to follow us on social platforms Facebook, Instagram and Twitter. Thanks so much for listening, and we look forward to connecting with everyone again!

EPISODE 67: Remarriage with a Child on the Spectrum With husband, Cameron Mills   INTRO: Hi, everyone! Welcome back to My Autism Tribe. It’s been awhile since my last podcast. Many of you have been following my family’s journey for a while, so you know many of the struggles, as well as the celebrations, we have experienced over the last couple of years. This episode will feature a very special guest, my husband. From dating, to engagement, to marriage, to homeschooling during the pandemic, we talk about it all. I hope you enjoy listening to this episode, as much as we did recording it. Thanks so much for tuning in!   SEGMENT: My husband and I met for the first time over a year ago. We started out as friends, hanging out in group settings, and started dating last October of 2019. Dating after divorce took a bit of time for me, and with me being a super protective mama, I had my standards set pretty high…some might say unreasonably high. But this man, my husband, still leaves me in awe. He’s amazing, and I’m excited to introduce him to you. Please give a warm to my husband, Cameron!   CONCLUSION: I admit that I was skeptical about ever finding someone after my divorce. I truly never thought there would be anyone that would be a teammate with me, and would love my son as I do. No one would ever be good enough…but I was wrong. So very wrong. Cameron is my person, and I’m so thankful to have him at my side, helping me to navigate this crazy journey of parenthood. Thank you for being a part of My Autism Tribe, and for embracing my husband. Cameron, I love you. Thank you for choosing to share your life with Alex and me.   ADDITIONAL INFORMATION:   Cameron Mills Ministry: Facebook - https://www.facebook.com/cameronmillsministries   Cameron Mills Radio: Facebook - https://www.facebook.com/cameronmillsradio Instagram - https://www.instagram.com/cameronmillsradio/ Twitter - Twitter - https://twitter.com/cameronradio   Cameron Mills (personal): Twitter - Twitter - https://twitter.com/CameronMillz

EPISODE 66: Behavioral Health Therapy for ASD With Sean Inderbitzen   INTRO: Hi, everyone! Welcome back to My Autism Tribe. We’ll be speaking with Sean Inderbitzen on today’s show. He’s a mental health clinician who is on the autism spectrum, and reached out a couple of weeks ago because he wanted to share his voice. It makes me so happy when people reach out to me – it truly does. I want to make sure that everyone is able to share their voice, because that’s how we learn, how we expand and stretch ourselves, and at the end of the day – accept one another regardless if our views and opinions may sometimes vary from others. Thanks so much for listening!   SEGMENT: Sean was diagnosed with autism at the age of 18, and is now a practicing behavioral health therapist. He’s so passionate about helping his clients, and letting others know about the importance of having counseling services available to people who have autism. He notes, however, that in a study 43 out of 44 clinicians are not comfortable in counseling patients on the spectrum. It’s pretty special that Sean has this personal experience as a way to relate and empathize with those lives that he touches. Please welcome Sean to our show!   CONCLUSION: “The process of therapy for clinicians who work with individuals on the spectrum requires a unique subset of therapeutic skill that is not always taught in graduate training. While it’s important to utilize all of the common microskills (like showing empathy, active listening, open-ended questioning) with the ASD population, it’s also important to recognize these individuals may have an additional set of needs for the therapy room. For example, they may not have the cognitive capacity to follow metaphors and/or analogies that are often used in therapy.” Providing continuing professional development for clinicians will help increase the number of competent professionals in providing these appropriate services, and I’m so happy that individuals like Sean Inderbitzen are advocating. Thanks so much for being a part of My Autism Tribe, and I’ll see ya soon!   ADDITIONAL INFORMATION: Email: seabindie@me.com https://www.youtube.com/watch?v=uYJdX4NCous https://www.youtube.com/watch?v=EYgqa_FbTok    

EPISODE 65: NEURODIVERSITY IN THE WORKPLACE With Joseph Riddle   INTRO: There are really important skills that people with autism have, that make them, in some cases, the best employees you could have. This is something that small businesses could benefit from, and is already something that many large corporations are already using to their advantage. Today, we’re speaking with Joseph Riddle, the Director of The Neurodiversity in the Workplace team, a dedicated group of talented individuals who work tirelessly for the people they serve. Thanks so much for listening!   SEGMENT: Because of certain traits of autism, individuals with autism often have trouble getting past the interview stage for a job or maintaining a position once they are hired. Joseph Riddle has led a team to design and partner in implementing hiring programs for neurodiverse individuals. Companies such as SAP and their Autism at Work program, Dell, and Bank of America have participated in hiring programs allowing the creation of a network of employers and talented individuals on the spectrum. These companies, with support from Joe and his team, are leading the way in demonstrating to the American workforce that neurodiverse talent is both valuable and productive.   CONCLUSION: Few resources have been allocated to understanding autistic adults. According to a 2017 report from the Interagency Autism Coordinating Committee, only 2 percent of autism research funding goes into understanding the developmental disorder for the adult population. Autism isn’t just something for young individuals, and more needs to be done to propel and prepare this population. With organizations like Neurodiversity in the Workplace, we can not only become inspired, but also determined to make the workforce a better and more welcoming environment for our loved ones. Thanks so much for being a part of My Autism Tribe, and I’ll see you soon.   ADDITIONAL INFORMATION: Email: neurodiversity@nitw.org   Facebook: https://www.facebook.com/NeurodiversityInTheWorkplace/ Instagram: https://www.instagram.com/neurodiversityintheworkplace/ Twitter: https://twitter.com/4Neurodiversity

EPISODE 64: ENHANCING LIVES FOR FAMILIES OF AUTISM With Rachelle Vartanian   INTRO: Hi, everyone! Thanks for connecting with this week’s podcast featuring Rachelle Vartanian. She’s the founder and president of the Living and Learning Enrichment Center, a former special education teacher, and mother of a teenager on the autism spectrum. If this is your first time here, welcome! If you are a returning listener, thanks for coming back! We truly do appreciate it. Be sure to check us out on your social platforms, and if you’re enjoying this podcast, we’d love your rating and review wherever you listen to podcasts – it helps make our voices stronger. Let’s get started!   SEGMENT: The Living and Learning Enrichment Center is based in Northville, Michigan and their mission is to help individuals with autism and related challenges reach their full potential in work, relationships and in the community. They have summer camps, art and music classes, clubs, social and professional skills groups. It’s really impressive what they’re doing, and I’m excited to speak with the founder today – Rachelle. Let’s give her a warm welcome.   CONCLUSION: The unemployment rate for individuals with autism is upwards of 90%. With training like that provided by the Living and Learning Enrichment Center, job training, real world job experiences can be achieved for those individuals with autism and other special needs. It’s truly special what these organizations are doing, and it’s my hope that more organizations will begin doing the same. Thanks for being a part of My Autism Tribe, and I’ll see ya soon!   ADDITIONAL INFORMATION: Website: https://www.livingandlearningcenter.org/ Facebook: https://www.facebook.com/livingandlearningenrichmentcenter Instagram: https://www.instagram.com/livingandlearningcenter/ Twitter: https://twitter.com/livelearncenter Pinterest: https://www.pinterest.com/livinglearnllc/boards/

EPISODE 63: Co-occurring Conditions in Autism With Brad Ferguson of Thompson Center for Autism & Neurodevelopmental Disorders at the University of Missouri   INTRO: Hi, everyone! Welcome back to My Autism Tribe. I hope everyone is hanging in there. School is out, so no more of the Non-Traditional Instruction in our home, however, we are going a little crazier as the days go on. Regardless, thanks for checking back in, and if this is your first time, welcome. I hope you find a piece of your autism advocacy here. Today’s guest is Dr. Brad Ferguson, an Assistant Research Professor in the Departments of Health Psychology, and Radiology at the Thompson Center for Autism & Neurodevelopmental Disorders at the University of Missouri. I wonder if he has all of this on a business card (laugh). I’m really pumped about the information that he’s going to share today, so please stay tuned. Don’t forget to check us out on our Facebook, Instagram, and Twitter platforms, and if you’re enjoying this podcast we sure would love a rating and review wherever you listen to podcasts. It helps make our voices stronger. Thanks for listening!   SEGMENT: Dr. Ferguson has been conducting research in autism for over 12 years, and his main research focus over that period of time has been the study of co-occurring conditions in autism, mainly gastrointestinal problems and problem behaviors. His goal is to find out why many autistic individuals have co-occurring conditions so that they can be addressed, which will ultimately lead to increased quality of life. Let’s welcome Dr. Ferguson to our show.   CONCLUSION: There are so many organizations out there that are doing amazing research on autism-related topics – many of them that I’m just discovering. These people are devoting their lives to make sure we are making positive strides, gaining more information than we had yesterday, in order to make improvements in the lives of those we love so much. Thanks for being a part of My Autism Tribe, and I’ll talk to you soon!   ADDITIONAL INFORMATION: thompsoncenter.missouri.edu Facebook: https://www.facebook.com/TheThompsonCenter/ Instagram: https://www.instagram.com/mutcautism/

EPISODE 62: EXCEPTIONAL MINDS ON THE AUTISM SPECTRUM With guest Corinne Levitt   INTRO: Hello, and welcome back! Today we’re speaking with Corinne Levitt, a special educator and author of a new book called “Exceptional Minds Across the Autism Spectrum”. Her background in learning disability psycholinguistics, and the arts has enabled her to “teach to the talent” while encouraging her students to discover and explore their potential. She’s a fascinating woman, and I’m excited for her to share her story. Stay tuned and follow us on our social media platforms to engage or ask questions. Thanks for listening!   SEGMENT: Corinne Levitt wrote her latest book in recognition of the need to promote the important role an enriched educational experience can have on the lives of students who stand to benefit the most from best educational practices. Let’s welcome Corinne to our show today.   CONCLUSION: As Corinne has stated, “more than money, resources, or even teaching methods, it is our attitude toward those who seem different that influences our expectations and limits learning opportunities for growth and development. It’s our attitude and understanding that shape our vision. But attitudes and mindsets can change, and when that happens, we can move closer to understanding the struggles and learning challenges of individuals with exceptionalities.” I hope this podcast finds you and your family safe and healthy. Keep up the great work, and I’ll talk with you soon!   ADDITIONAL INFORMATION: www.teachexceptionalminds.com    

EPISODE 61: CBD FOR AUTISM With guest Dr. Rachna Patel   INTRO: Hi, everyone! First and foremost, I want to thank everyone out there who has been patient with me these last couple of months. It turns out that working a 9-5 job, homeschooling my son, and running a nonprofit with these podcasts is a lot harder than I thought. Just know, that I’m doing my very best to bring you the most relevant information, from people within the autism community, to the best of my ability. Today, I’m speaking with Dr. Patel, who is a world-recognized expert in the field of Cannabinoid Medicine. CBD is something that we hear about all the time, but maybe perhaps, we still have very limited knowledge on. Stay tuned to hear Dr. Patel share information on CBD products, what to expect when using CBD products, while also dispelling some of our fears that we may have. Thanks for listening! SEGMENT: I’ve personally looked into CBD products, not only for myself, but also for my son. I’ve had conversations with many families on their use of CBD. Dr. Patel is with a company called Doc Patels, a company that produces CBD products made from industrial hemp plants derived on American farms which produce 100% 0.00% THC Broad Spectrum CBD products through their patented process. Their team of 30 engineers, scientists, a psychiatrist and even a dentist, along with their manufacturing partner, consist of Doc Patels. Let’s welcome Dr. Patel to our show. CONCLUSION: As families are looking for natural, healthy ways to help their loved ones, and even themselves, I hope you find this information helpful in your decision-making process. Every path is different, but whatever path you choose, know that we are here to support you along the way. Thanks so much for listening, and I’ll talk to you soon!   ADDITIONAL INFORMATION: www.DocPatels.com

EPISODE 60: AUTISM ISN’T BLACK AND WHITE With Erin Clemens   INTRO: Hi, everyone! As you know, April is Autism Awareness month, as we continue to raise autism awareness, and promote autism acceptance and inclusion in our communities (although it may look a bit different now), I wanted to feature yet another autism advocate. This week’s episode features guest Erin Clemens. Erin is an awesome young woman on the autism spectrum. When she’s not working, she’s volunteering and helping others. She graduated from college last year, and is interested in pursuing a career in dog training. She’s an absolute pleasure to speak with, and full of so much knowledge and insight. Stay tuned to hear her story.   SEGMENT: Today, we’re providing a stronger voice to another powerful autism advocate, Erin Clemens. She’s a public speaker, and author of a book called “I Have Asperger’s”. Let’s give a warm welcome to this delightful young woman.   CONCLUSION: It’s important that we listen to those voices that can provide personal experiences. There are varying opinions, and often times, these opinions may not align with another person’s opinions. That’s ok, because autism isn’t black and white…it’s a spectrum…and we are all on different journeys, and I’m so glad that Erin was able to share her’s. Thanks so much for being a part of my army…My Autism Tribe. Stay healthy, stay safe, keep your chin up, and I’ll see you here next week!   ADDITIONAL INFORMATION FOR ERIN: Website: https://erinclemens.wixsite.com/erin-clemens Facebook: https://www.facebook.com/erin.clemens.58 Twitter: https://twitter.com/AspergerSadie Instagram: https://www.instagram.com/aspergersadie/ YouTube: https://www.youtube.com/user/erinclem

EPISODE 59: A CONVERSATION WITH MY SON   INTRO: Hi everyone! Welcome to this week’s podcast. Hope you guys are hanging in there and staying healthy. I’ve definitely had small moments of anxiety these last several weeks, but am trying to stay positive and trying to keep a routine as much as possible. As many of you, I’m working my 9-5 job from home, while homeschooling my son, and producing this podcast. The last couple of episodes, you might have even heard my son in the background as I’ve been recording from my kitchen table instead of my makeshift and more sound-proof studio off of my bedroom, otherwise known as a closet. Lots of glamour here folks. Try to remain calm. So, as I’ve recorded these podcasts out in the open, my son has become more and more curious as to what in the world I’ve been doing. We’ve had our own little recording sessions with the microphone where he sings his favorite song, talks in different cartoon voices. It’s super cute, and so I thought I might try to actually interview him, and I use the word “interview” extremely loosely. So, bear with us, and thanks for listening! SEGMENT: There was a point in time where I didn’t know if I would ever truly know my son’s voice. I remember actually walking through a store one time and hearing a parent tell their child to shut up, and it took every ounce of mama bear energy in me to not go over to them and tell them our family’s story. And maybe I should, but I didn’t. Instead, my heart broke knowing that I would do absolutely anything to hear my son say anything, and here was this parent telling their child they didn’t want to hear what they had to say. Anyway, as I’ve said before, the My Autism Tribe platform was started because I made a promise to my son that I would be his voice and that voice I wanted to become stronger. Fast forward several years later, and my son is speaking, and there hasn’t been one time…I don’t exaggerate, not ONE time where I wished that he would not speak. His voice is the most beautiful thing I’ve ever heard, and so without further ado, I’d like to introduce you to my son, Alex. Hi, honey. I thought that maybe everyone would like to get to know you better, so I’m going to ask you some questions, ok? What’s your name? Alex What’s your favorite color? Red What’s your favorite food? Bacon Do you have a favorite dinosaur? Brachiosaurus Who’s my favorite boy in the whole world? Me Would you like to sing a song? What about that song that you made up the other day? The Scoop song? (sings) CONCLUSION: Thank you for sharing this experience with me. I know this isn’t the lengthy podcast that I’m used to doing, but I thought, “Why not? Why not take advantage of this quarantine to do something that is new?” Thank you for sharing this special moment with me, and for listening to the sweet sound of my son’s voice. A sound that I will never once take for granted, but will do my best to make stronger. I hope everyone out there is staying healthy at home. Thanks for listening, and I’ll see you next week!

EPISODE 58: Autism as a Stress Adaptation With Lori Hogenkamp   INTRO: Hi there, everyone! Welcome to this week’s podcast episode featuring autism advocate and consultant Lori Hogenkamp. Lori is on the autism spectrum, and has studied neuroscience and stress-related behaviors for over 20 years. Her love of science drives her passion for understanding the complex patterns of abilities and disabilities of those on the autism spectrum. Stay tuned to listen to her incredible story, and so much great information from her research.   If you’re enjoying this podcast, can I ask you of a favor? Could you rate and review My Autism Tribe wherever you listen to podcasts. It allows us to make our voices stronger by extending our reach. Send me a message if you want, and let me know if there is a subject that you’d like to hear about. Don’t forget to check us out on all of the My Autism Tribe social platforms: Facebook, Instagram, Twitter, and YouTube.   SEGMENT: Lori Hogenkamp explores the idea “Autism as a Stress Adaptation” and publicly speaks to parents, adults, teachers and healthcare professionals about using advanced physics to develop Stress Models to help understand and create innovative solutions for autistics, their environment and their families. She uses her knowledge to develop innovative Stress Management programs and seminars for professional, education and health organizations.   CONCLUSION: I hope that everyone out there is staying safe and healthy. If you need someone to listen, if you have a question or concern, we’re here for you. Let us know how we can help…how I can help. I know that everyone is doing a great job, even though we may not feel like it sometimes. Keep up the great work, and I’ll see you next week! Be well.   ADDITIONAL INFORMATION: Twitter: https://twitter.com/peripheralminds?lang=en LinkedIn: https://www.linkedin.com/in/lori-hogenkamp-44205410 Facebook: https://www.facebook.com/PeripheralMindsofAutism/    Blog: https://peripheralmindsofautism.com/presentation/    

EPISODE 57: ADJUSTING TO A NEW NORMAL   INTRO: Hi there! Welcome to this week’s My Autism Tribe podcast. To be honest, I’m struggling to remember what day it is, and who I was before this COVID19 quarantine existed. I’m almost positive that I’m a day late in posting this podcast, and 100% sure that I have a pile of clean clothes still in the dryer from 3 days ago that I have yet to fold and put away. The struggle is so real. I hope everyone out there is adulting at least a little better than me right now. Stay tuned as I share how we’re trying to find our new normal. And if you have a couple of minutes and aren’t watching the latest episode of Tiger King, or Frozen 2 for the 100th time, might you give our podcast a rating and review wherever you listen to podcasts? We could sure use some cheering up right about now. I kid…no, but seriously. It would be greatly appreciated. SEGMENT: It has been a little over two weeks since I’ve been working 100% from home, and since my son has been homeschooled. And I’m just being real…I’ve been struggling with feelings of anxiety as a single mama in keeping it all together. The first week was SUPER tough, for both my son and myself. We picked up a packet of homework from my son’s school, and I pulled all my files from my office so I could migrate under my home’s roof. I thought at the time that this wouldn’t be so bad, and it’s not because it could be a lot worse…I know that…but the anxiety starts settling in when I begin thinking about the unknown timeline. How long will we be in quarantine? How much will my son regress? How in the world am I going to work at full capacity, while also homeschooling my son, while also maintaining some of his therapy sessions, and while also making sure that my son doesn’t feel neglected because I’m not able to spend the amount of time that I would like with him? So many questions! Other parents and I have been having conversations about this, and there’s one common theme. We all feel like we’re failing…every single day. Even though this temporarily makes me feel better about my current situation, it also makes me sad and frustrated. Now, more than ever, we parents are being tasked we rise above all doubt in our parenting efforts. We’re taking on roles that we don’t have degrees or certifications for. We’re wearing multiple hats all day, changing them up as needed to fill the title that we’ve been given in any given hour. We’re more than parents. We’re teachers, therapists, playmates. I woke up this morning and again felt anxious about fulfilling my roles today, and I heard these words. “Susan, the more you feel anxious, the more you feel stressed, the more you feel in despair, the less you will be able to give.” I felt a calmness come over me. I’ve been able to approach today with a new set of lenses. Maybe this is just me making the adjustment to my new sense of normal. So, I made a list of things that I miss…not because I want to dwell on the things that I can’t have right now, but to give me something to look forward to. Taking my son to the park. There are only so many days that I feel like these walls will be standing. That at any moment, my son will morph full-on into a flying squirrel. If not him, most undoubtedly me. Our space is beginning to feel extremely small. Seeing the faces of other family members…actually their faces…not on FaceTime…not on Zoom…but being able to touch their sweet faces and give them kisses. Hanging out with friends. Meeting up with them for dinner at our favorite restaurants, and getting my son together with his friends for play dates. Going to the movies. I’m a big fan of Netflix, and Hulu, and Disney Plus…but there’s something that I’m craving about going to the big screen and catching the latest flick. Hanging out at the pool. Well, we’re still in our early spring in the U.S. so the pools aren’t open yet, but I sure do hope that when they do open, we will be out of quarantine. Call me crazy, but I love the smell of chlorine paired with fresh cut grass. Surely, I’m not the only one. Going to the zoo and the aquarium. If my son could move and set up residence at either of these two places he would, and even if my home will feel like a zoo in another few weeks, it will hardly be the same. He’s already making the itinerary of what exhibits he wants to see first. To see his smile when we get to go back – it will make all of this crazy stuff worth it. I understand that most of these are first world problems. There are so many people in our world that will never get to experience these. Which makes me believe that we are truly “resetting our priorities”. Don’t you think that maybe we took so much for granted? We spent so much time behind the windshield going to work, taking our children to therapy, and then back to work, and then to other appointments…maybe we just needed to slow down and truly learn to appreciate all that we have. We don’t NEED many things to live, and we truly don’t need many things to be happy. My son is a perfect example for me. He struggles sometimes, and yet he continues to have the most gorgeous smile…one that can light up any room. So…I’ll continue to do my best and give myself grace when I feel like I’ve failed. I’ve learned that I’m not a very good Kindergarten teacher. I’m not the best therapist for my son, but you know what? I’m a mom, who loves her son so much, and at the very least, I will make sure that my son is happy, healthy, and feels love every single day. That, I feel, is what I can control the most. The rest…well…this time will pass and as cliché as it is, it will make us stronger. I truly believe that. Thanks so much for being a part of My Autism Tribe. Hang in there, and I’ll see you next week!

EPISODE 56: Helping Families with Special Needs During the COVID-19 Crisis With Amy Kelly   INTRO: As we all are very much aware, COVID-19 is affecting everyone’s lives around the world. COVID-19 is a new strain that was discovered in 2019, and has not been previously identified in humans. There is so much information out there; some is factual and some is misleading. This leaves us with a lot of questions, but I believe it’s important to speak on how it might be affecting the autism community specifically. How do we help families who live with autism and disabilities? How do we help them cope with everything during this trying time? How do we explain this current situation to our children? Stay tuned to listen to today’s guest as she offers some insightful information that may benefit you and your family. SEGMENT: Today’s guest is Amy Kelly. She’s the mother to Danny, Annie, and Ryan. Her daughter Annie is diagnosed with moderate to severe autism, verbal apraxia, intellectual and developmental disabilities, and general anxiety disorder. Amy is the National Director of Family Engagement for Devereaux Advanced Behavioral Health, one of the nation’s oldest and largest nonprofit providers of behavioral healthcare, and she also serves as a family representative on several special-needs boards in the community, locally and nationally. In addition to all of this, she participates with other patients and families in efforts supported by the American Board of Pediatrics Foundation to address children with special needs and the importance of quality care. She’s quite the busy lady, and sounds like she’s gonna to be able to share some really good stuff with us. Let’s welcome Amy! CONCLUSION: Please know that I’m thinking about everyone out there. I’m lifting you up, sending virtual hugs, high-fives, fist bumps…you name it. Now more than ever we have to be in this together. It’s an emotional time for everyone, and I do hope that if you need someone to listen that you please reach out. Send me a message on any of our social platforms, send me an email. I want to make sure that all platforms are open and available to you. If I can’t personally assist you, I’ll make sure that I find someone that can. You’re not alone. You never have been, nor will you ever be. Thanks so much for being a part of My Autism Tribe. Hang in there, and I’ll see you next week!   ADDITIONAL INFORMATION: Facebook – https://www.facebook.com/DevCareers LinkedIn – https://www.linkedin.com/company/devereux/ Twitter – https://twitter.com/DevereuxCEO YouTube – https://www.youtube.com/channel/UCrF_lQGwNvQHuqQ7xcSE0Gg   About Devereux Advanced Behavioral Health https://www.devereux.org/site/SPageServer/?pagename=helping_families Devereux Advanced Behavioral Health is one of the largest and most advanced behavioral healthcare organizations in the country. They have a unique model that connects the latest scientific and medical advancements to practical, effective interventions in the treatment of behavioral health. They were founded in 1912 by one of the first pioneers in the field, Helena Devereux. Today, they are a national nonprofit partner for individuals, families, schools and communities, serving many of the most vulnerable members of our society in areas of autism, intellectual and developmental disabilities, specialty mental health, and child welfare. Informed by the latest advancements in science and medicine, they combine evidence-based interventions with compassionate family engagement to help change lives. Their programs are offered in hospital and residential, community, and school-based settings. They include: Comprehensive Assessment, Diagnostics and Measurement to support data-driven care Evidence-based Treatment & Special Education Transition and Independent Life Services Family Education and Professional Training Research and Innovation to advance the field Advocacy, Public Awareness and Prevention

EPISODE 55: PIXAR’S BOBBY RUBIO SHARES HIS AUTISM DAD STORY IN “FLOAT”   INTRO: Hi, everyone! Welcome to this week’s episode with a very special guest, Bobby Rubio, an autism dad and a story artist at Pixar. You may have seen his personal and professional story in thousands of news feeds around the world. You don’t want to miss this one! Also, if you’re enjoying being a part of My Autism Tribe, and listening to our podcast, we would love for you to take a moment to rate and review us wherever you listen to podcasts, and of course, share us with a friend or your organization. That’s how we make our voices stronger. We’re also on all social platforms, so give us a follow and send us a message about topics that you would like to hear about. It’s important to us that we’re providing you with information and messages that are near and dear to your heart. Thanks for listening!   SEGMENT: When parents first receive an autism diagnosis, and even in moments afterwards, they may feel like they’re drowning…and they’re not alone. Many of us may feel like this, but our guest today has created a special animation that touches every parent, and sheds a light on the positivity that can be found in dark times. Bobby Rubio made his directorial debut with Pixar’s animated short “Float” on Disney Plus in November and it has captured our hearts and told many of our stories. Bobby has worked at Pixar as a story artist since 2012, contributing to “Inside Out”, “Incredibles 2”, and “Brave”, but “Float” broke through barriers as not only a short focused on neurodiversity, but also Pixar’s first work to feature a Filipino American animated character. The short tells the story of a father that discovers his son is different than others, and rather have the outside world view him as being different, the father keeps his son out of sight. Bobby’s own son, who was diagnosed with autism, didn’t handle the news of his son’s diagnosis well…again…just like many of us, and his testimony is so heart-felt and inspiring. Please welcome, my special guest today, Bobby Rubio.   CONCLUSION: The story behind “Float” is not only a story that autism parents can relate to, but about some of the struggles that every parent has with their children. We need to love and celebrate people from all walks of life. Being unique or different isn’t bad, but beautiful. I truly do believe that, and it’s my hope that Bobby’s story touched you in the way that it touched me. The way that it inspired me. It’s ok to step outside of your comfort zone, and embrace the unknown. Thanks so much for joining me today, for being a part of My Autism Tribe, and for being an advocate for yourself and others. I’ll see you next week!   ADDITIONAL INFORMATION FOR BOBBY: Instagram: https://www.instagram.com/bobbyrubio/ Facebook: https://www.facebook.com/barrypresh Twitter: https://twitter.com/Bobby_Rubio Disney Plus: https://www.disneyplus.com/ “Float” on Disney Plus: https://www.disneyplus.com/movies/float/7dIYGyfvHWEJ

EPISODE 54: Financial Planning for Your Special Needs Child With Nick Wallace   INTRO: Raising a child with special needs can be one of life’s most fulfilling experiences, but it can also be one of the most costly. According to Autism Speaks, raising a child with autism costs on average $60,000 a year, but let’s face it…it costs a lot more than that for a lot of us depending on the severity and insurance coverage. It can be scary looking at the financial numbers, and even scarier when you wonder what would happen if something happened to you. Long-term financial planning is daunting, but no matter your child’s age, it’s important for you to start as early as possible.   Today, I’m speaking with Nick Wallace, a financial planner that focuses on planning for families in the special-needs community. His passion for this type of planning is inspired by the feeling of relief that he experienced after working through a game plan for his brother’s future, who has special needs. Nick is going to share some insights from the daily conversations that he has with families and planning for their loved ones.   CONCLUSION: The process for financial planning for a special-needs loved one takes time, but you can start by laying out a timeline for what needs to be done. Plan early, and revise as needed. It’s not easy or straightforward, and what makes sense for one family may not make sense for another. Get help. It’s doable. Thanks so much for being a part of My Autism Tribe, and I’ll see ya next week!   ADDITIONAL INFORMATION   TOOLS THAT ARE OFTEN USED: Various types of special needs trusts (with the help of a special needs attorney) ABLE accounts (when appropriate if allowed by the state) Various types of life insurance to answer the tomorrow questions or the 40 years from now questions Various types of investments for retirement and estate planning   QUESTIONS TO ASK YOUR FINANCIAL PLANNER: Did we take into consideration my loved one’s special needs when we established my insurance and investment game plan? Do I have enough life insurance to protect the care and income that I provide my family if something were to happen to me tomorrow? How did we arrive at this number? What steps can I take to make sure that I am on track for retirement? How did we come up with these numbers? Are my beneficiary designations on my life insurance and investment accounts set correctly so that my loved one with special needs’ benefits will not be in jeopardy? What is the long-term game plan on leaving behind money for my loved one if I live a long life of caring for them, but pass away before they do? A solid financial plan has answers for the “what-ifs” that life could throw at us tomorrow or 60 years from now. Nick recommends meeting with a financial advisor at least yearly to review plans and make changes if necessary.   NICK WALLACE CONTACT INFORMATION:   Facebook - @nickwallacefinance Website – www.nickwallace.nm.com Email – nick.wallace@nm.com

EPISODE 53: SOCIALIZATION OF CHILDREN WITH AUTISM With Dr. Annette Nunez     INTRO: Hi, everyone! Welcome to this week’s episode primarily focusing on mainstreaming and socialization of children with autism. I’m speaking with Dr. Annette Nunez, the founder and director of Breakthrough Interventions. You may have even seen her on FOX News as she does many interviews on the power of positivity and autism. Stay tuned to listen to this awesome lady share her experience and advice on cultivating positive relationships through facilitated play and much more.   Also, a friendly reminder that if you’re enjoying the podcast, I would love for you to take just a minute to rate and review wherever you listen to podcasts and share with a friend. That’s how we make our voices stronger. Thanks for listening!   SEGMENT: Dr. Annette Nunez conducts many seminars both nationally and internationally, in addition to consulting with schools in China and South Africa on autism interventions. She is a licensed psychotherapist and has worked with children on the spectrum and other related disorders for over 20 years. She has a B.A. in Psychology, a Masters in Marriage and Family Therapy, and a Ph.D. in Quantitative Research Methods with a specialization in Child Development. She loves working with the whole family, so much so that she created an online community called Breaking Through Autism where she shares support and self-care tips. We all know that every journey looks different, but it’s the support system that you need to help guide, inspire and encourage you along the way. That’s what keeps EVERYONE moving forward. I’m really excited to introduce Dr. Annette Nunez to our show today.   CONCLUSION: As Dr. Nunez has stated, “Success for me is not what I can do for your child. Success is when parents trust and support the process no matter how hard it can be. Success is when I have the privilege to watch my clients realize their full potential and have a positive outlook on life and their future.” Rather than focusing on the negatives that you may hear, “your child will never, can’t, etc.”, try focusing on the positives. Thanks so much for being a part of My Autism Tribe, and I hope to see you next week.     ADDITIONAL INFORMATION:   Dr. Annette Nunez Bio Dr. Annette Nunez is the founder and director of Breakthrough Interventions, LLC. She is a licensed psychotherapist and has worked with children with ASD and other related disorders for over 20 years. She received a B.A. in Psychology, an M.S. in Marriage and Family Therapy and a Ph.D. in Quantitative Research Methods with a specialization in Child Development. At UCLA, she studied and trained with renowned autism expert, Dr. Ivar Lovaas on Discrete Trial Training (DTT). She also received training from the Institute for Child Development in California on the Floortime Approach and developed a successful behavioral program that combined aspects of DTT and Floortime. As part of her doctorate work at the University of Denver, Dr. Nunez developed the Children’s Social Competence Scale (CSCS). The CSCS is an early intervention evaluation tool that measures social competency in young children. She serves as the Program Director for Connect Us, a non-profit organization that helps children cultivate positive relationships through facilitated play. Her research interests include the mainstreaming and socialization of children with High Functioning Autism. Dr. Nunez co-wrote the Friendship Is… book and is currently writing a book about the Breakthrough Interventions model that will be published this year. She conducts many seminars both nationally and internationally and has consulted with many schools in China and South Africa. Dr. Nunez also consults and supervises the therapists at the Breakthrough Interventions site in South Africa. Dr. Nunez was honored by the Autism Society of Colorado as a finalist for the 2011 Faces of Autism Professional Award. You can see Dr. Nunez on FOX News as she as she does many interviews on the power of positivity and autism. She plans to continue educating parents and professionals about mainstreaming and socialization of children with Autism.   Facebook: https://www.facebook.com/BreakthroughInterventionsLLC/ Instagram: https://www.instagram.com/breakthrough_autism/ Twitter: https://twitter.com/BTInterventions Podcast: http://www.btinterventions.com/episodes/

EPISODE 52: ATYPICAL AND PROUD OF IT With Joy Johnson   INTRO: Hi there! Welcome to this week’s podcast episode “Atypical and Proud of It”. I’m really excited to be speaking with behavioral therapist Joy Johnson who is also on the spectrum herself. I fell in love with her Instagram page because she is just super honest, and let’s be real…what better way to learn about neurodiversity than from someone that is on the spectrum. I hope you enjoy! Also, make sure that you’re following My Autism Tribe on our social platforms, Facebook, Instagram, Twitter and also YouTube. Let’s make our voices stronger.   SEGMENT: Joy Johnson is an autism advocate, behavior and inclusion specialist, and is on the spectrum. She uses her social platform to not only share her thoughts on everyday life, but also her thoughts on some of the more popular autism research and science. It’s such a joy to welcome Joy Johnson to our show today!   CONCLUSION: In the past, our traditional expert knowledge came from observations by professionals who often lacked the personal experience of being autistic, but by listening to autism advocates that are on the spectrum, we can gain a larger understanding and acceptance of autism. One might even say that those on the spectrum are the true experts, right? Thanks for listening to this week’s episode, and thanks for being a part of My Autism Tribe. I’ll see ya next week!   ADDITIONAL INFORMATION: Instagram: https://www.instagram.com/joyfjohnson/

EPISODE 51: AN AUTISM DAD’S FIELD GUIDE With Tim Gonzalez-Smith   INTRO: Hi there! Welcome to My Autism Tribe! Today I’m speaking with an autism dad, Tim. So often times, we are listening to the voices of mothers to children on the spectrum, but Tim is going to share all about his journey with his son, Rafa, and how he is educating and supporting the autism community from a dad’s perspective. Keep listening – he’s awesome! And, if you’ve been enjoying this podcast, I would love it if you could rate and review us wherever you listen to podcasts and share with a friend. It helps make our voices stronger.   SEGMENT: I started following Tim through his Instagram account @autismdads, because a dad’s perspective is just as important as a mother’s when raising a child on the spectrum. Tim knew this and wanted to connect with the autism community. Along the way he has provided support for so many people, and has also learned so much from others, which he shares with us. He has struggled with anxiety, just like a lot of us, and is such an awesome advocate for his son. Please welcome Tim.   CONCLUSION: To all the dads out there that are traveling on this autism journey, thank you for everything that you do. We see you! You are a very important member of our Autism Tribe. Thanks for joining me this week, and thanks for being a part of My Autism Tribe. I’ll see ya next week!   ADDITIONAL INFORMATION INSTAGRAM: https://www.instagram.com/autismdads/ BOOKS: “The Autism Field Guide” – A book to help parents of newly diagnosed kids use empathy and understand as a way to support & empower. “8 Ways to Support an Autistic Child and Improve Yourself” on the www.theautismfieldguide.com

EPISODE 50:  FROM REAL HOUSEWIVES TO AUTISM ADVOCACY, JACQUELINE LAURITA DOES IT ALL   INTRO: Hi, everyone! You are in for a special treat today. Today’s guest is none other than autism mom advocate extraordinaire and reality tv celebrity, Jacqueline Laurita. She was on Bravo TV’s “The Real Housewives of New Jersey” for seven seasons, and during this time her adorable son Nicholas received his autism diagnosis. She’s gonna share all about that, so stay tuned. You definitely don’t want to miss it. Also, you may have seen, the My Autism Tribe podcast and nonprofit organization just recently celebrated our one-year birthday. That’s one year of successes, one year of challenges, and one year of getting to know each of you. Thank you for coming along on this journey with me, and for listening to this podcast! Your support means the world.   SEGMENT: Jacqueline’s son Nicholas was diagnosed with autism in 2012 at the age of three, and since this time Jacqueline has become a leading advocate in campaigns for increasing autism awareness. She’s a female powerhouse with a mama bear’s love for her family. I’m so excited to introduce to you, Jacqueline Laurita.   CONCLUSION: Whether you are a regular on a TV reality show, a teacher, a service provider, a stay-at-home mom, ALL of our voices are absolutely necessary in spreading autism awareness and acceptance in our communities. Maybe your platform is social media, or being a part of your child’s PTA. Don’t be afraid to make your voice stronger. Thanks so much to Jacqueline for her time and willingness to share her family’s story with us, and thanks so much to you for listening. You are an amazing member of My Autism Tribe, and without you none of this would be possible. I’ll see ya next week!   QUESTIONS ANSWERED DURING PODCAST: Can you tell us more about the diagnosis story- who, what where when and how-  What have been some of the biggest challenges you and your family have faced?   Let’s talk about advocating and awareness- what recent work have you done that has helped with awareness?  With all the many projects you have going on and caring for your family how do you like to unwind and relieve stress?  What words of advice would you tell the person you were 10 years ago?  Can you share a story of success in your journey?  Tell us more about Simple Spectrum and why you’re so passionate about this company? Can you tell us more about your nutrition background and why you got into this? Why do you think Simple Spectrum is so different than most supplements out there?  Can you tell us the difference that nutrition and supplements have made for you guys? Gluten free/ casein free diets?  Do you miss being on the housewives? Any chance you will do it again? Can you tell us more about The Lookover Ladies podcast? How’s that been going?   ADDITIONAL INFORMATION FOR JACQUELINE Facebook: https://www.facebook.com/jacquelinelaurita/ Instagram: https://www.instagram.com/jaclaurita/ Twitter: https://twitter.com/JacLaurita Book: https://www.amazon.com/Get-Beauty-Wellness-Getting-Together/dp/1940363845/ref=sr_1_1?keywords=get+it%3A+a+beauty%2C+style%2C+and+wellness+guide&qid=1580314793&sr=8-1 Podcast: https://podcasts.apple.com/us/podcast/the-lookover-ladies/id1479048850

EPISODE 49: THE AUTISM CAFÉ – A PLACE OF LOVE AND SELF-DISCOVERY With Eileen Lamb   INTRO: Hey, guys! Welcome to the My Autism Tribe podcast! If this is your first time, I’m glad you found us, and if you’ve been listening – welcome back! Today I’m speaking with Eileen Lamb. She’s the founder of blog The Autism Cafe, and she is also a writer and photographer. Born in France, she now lives in Austin, Texas with her husband and two sons, Charlie (6) and Jude (3). On her blog, she shares the ups and downs of raising a severely autistic child while being on the autism spectrum herself. You’re not gonna want to miss this one. I’m really excited to have her on the show today. Also, don’t forget to check us out on social media. That’s Facebook, Instagram, Twitter and YouTube. It’s My Autism Tribe across the board, so find us, follow us, join our tribe. We’d love to have you!   SEGMENT: Before we start our interview, I’d like to share with you a quote from our guest today. You can find this on her blog The Autism Café: “Dear Strong Woman: You don’t show your pain because you heard that to be vulnerable is to be weak, that crying is a flaw, and that you need to get back up as soon as you fall. Yet you don’t.  I’m here to tell you that it’s okay if you can’t. Strength is finding the courage to speak up in a world that has been cruel to you. Strength is letting people in, no matter how many times you’ve been hurt before. Strength is being able to say, “I’m not okay right now. I need you.” Those are such powerful words, right? I’m so happy to welcome Eileen to our show.   CONCLUSION: Eileen’s unique story, coupled with her absolutely stunning photography, is an inspiration and tribute to all who overcome the impossible and persevere for those they love. There are so many people out there that are, for whatever reason, traveling on this journey alone…but it doesn’t have to be that way. I hope you, and others, find relief in knowing that there are a lot of us traveling the same road and you don’t have to travel alone. As Eileen points out, road trips can be fun – why not join others. We are not alone. Thanks for being a part of My Autism Tribe and I’ll see ya next week!   ADDITIONAL INFORMATION: https://theautismcafe.com/ Facebook: https://www.facebook.com/theautismcafe/ Instagram: https://www.instagram.com/theautismcafe/ Twitter: https://twitter.com/theautismcafe   Get a hardback copy here: All Across The Spectum Get the Kindle version here:  AATS on Amazon

EPISODE 48: AUTISM ADVENTURES (WITH BIG E) With Jacqui Folks   INTRO: Hi there! Thanks for joining me today. I’m speaking with a busy mother of three young men, Jacqui Folks. Her middle son, Ethan, has autism, and she’s going to share her family’s story, along with some resources that she has been working on for the autism community. I also want to let you know that this week will mark the one-year anniversary for the My Autism Tribe podcast. It seems like yesterday that I started it, but it’s been a whirlwind and here I am one year later…still breathing…high five! If you haven’t had a chance to rate or review the My Autism Tribe podcast, it would absolutely be cool if you did. It helps people find our podcast – especially on Apple Podcasts. Thanks for listening, as always, and for going on this crazy journey with me. You’re the best!   SEGMENT: Jacqui Folks son was diagnosed in 2003, a time when there were little resources out there for parents. Think about all the resources that we have now, including podcasts! She learned almost everything from books, but there was also something that she felt that was missing. I’m excited for her to share what that was. Please welcome Jacqui Folks.   CONCLUSION: I love hearing inspirational stories from those in the autism community. We are a group of fighters ya know, and I mean that in a good way. A bunch of mama and papa bears, and fearless advocates, both on and off the spectrum that are clawing our way for better awareness and inclusion in our communities. It’s so awesome. Thanks for being a part of My Autism Tribe, and I’ll see ya next week!   JACQUI’S BIO: When my son was diagnosed in 2003 there were little to no resources out there for parents. I learned almost everything I know from books. However, there were no children’s books I could share with him for his learning experience. It was always suggested to me to write social stories, and I did, but nothing is more catching than a good children’s book.   Over the years I have kept them and my dream was to have a series of Autism friendly books, with a main character who has Autism, for spectrum kids to listen and learn from. Well, my dream is coming true. Book one in our series is here!! These stories are something I longed for as I was raising my son. They would have been so helpful to just pick up and read before each life event. I would have used them daily at home, in the community and in the classroom. I feel confident that they can help others in the future. Here are a few reasons why: -Simple, short, direct and honest text that is actually used in the home. -Reference to visuals, picture boards -The same returning character with a simple and fun name. -The same start and end to each book, no matter how different the story or message is. Repetition is key! -There are several stories about Autism but very few series. In my research I only found two and they were short series not based on daily life skills. -My series does help with daily life skills but with fun illustrations and a relatable, adorable, supportive main character. -A lot of parents and educators do not know how to access or write social stories. Why not provide them for these families and educators?   Awarded a top book of 2019 by Autism Live and featured in their 2019 Holiday Toy & Gift Guide: https://www.facebook.com/adventureswithBigE/

EPISODE 47: FUBAR: Autism Parenting With Jessica Temple   INTRO:  If you spend just one minute on Google searching for parenting memes, you’ll be inundated with hilarious quotes and pictures on how to survive parenthood. It’s something that us parents get a few good laughs from, while we’re silently screaming inside. How many times have we questioned ourselves, “Will I get through this?”. My guest today, Jessica Temple, is the creator of a podcast called FUBAR: Surviving Parenthood with Special Needs Kids, and is also a board-certified clinical neuropsychologist. Her podcast is all about creating a non-judgmental space to realize that we all actually WILL live through this, and offer tips on making the survival of parenthood an actual possibility. It’s hilarious. Jessica and her husband have two children with special needs. Their oldest has autism, ADHD, sensory processing disorder, and developmental delays, and their youngest child had a perinatal stroke and has developmental delays. It’s a complete joy to welcome Jessica to our show today.   CONCLUSION: There’s no perfect way of parenting, and as Jessica points out, there are always “fails”, “nails”, and “comical tales” along our journeys. Learn to embrace them, and know you are not alone. We’re all in it together. Thanks for joining me on my journey, and thanks for being a part of My Autism Tribe. See ya next week!   Additional information:  Website: www.fubarpod.com Twitter: https://twitter.com/fubarpod Facebook: https://www.facebook.com/groups/fubarpod   

EPISODE 46: A Confession to My Autism Tribe with Susan Scott   INTRO: Hi, everyone, Happy New Year! I hope you had an amazing send off to 2019. I announced last November that I was taking a podcast break, so I thought it would be fitting to have the first podcast of 2020 be a confession to you on why this happened. It’s a bit uncomfortable to share, but you deserve to know so stay tuned. Also, a reminder, if you’re enjoying this podcast, please rate and review us wherever you listen to podcasts, and share with a friend. That’s how we make our voice stronger. Thanks so much for listening!   SEGMENT: I haven’t always been completely honest with myself and others. When people have asked me if I was ok, I would say, “I’m great!” because let’s face it, do people really want to know what kind of crappy day that you’re having when they ask you that question? I’ve even looked in the mirror and told myself that things were moving along quite smoothly, and things were looking up…when in fact, I felt like I was drowning. Perhaps a part of me was trying to “fake it ‘til I made it”. In November of last year (2019), when I announced that I was taking a break in December, it was from complete and utter burnout. The kind of physical, mental and emotional burnout that left me feeling scatterbrained (beyond normal), dazed, not willing to make an effort of everyday duties like laundry, etc. But even worse than that, I felt myself disconnecting from my son. I was in my own world. That’s when I realized that taking a break was absolutely, without a doubt, imperative. My Autism Tribe was formed initially as a standalone podcast, but then added a nonprofit component. This has proven to be one of the hardest challenges in my life. In 2019, I very literally poured every ounce of energy that I had (after caring and loving on my son) into this organization and podcast. I’ve had some event successes, and other events that have fallen flat on their faces. I don’t have an administration team helping me every day. It’s 99.9% me. I don’t have a significant other that can offer encouragement when I’ve had a bad day, and I know that many of you are in the same situation. It’s tough to keep all the plates spinning and still feel sane, am I right? But I’m not sharing this stuff with you for sympathy. I’m sharing because I want you to know about how some of my viewpoints have changed. In the month of December, I did a lot of thinking, a lot of reflecting, a lot of praying, and I’ve decided that I’m going to change things up a bit. Let me explain. Up until now, I’ve intentionally kept the My Autism Tribe social platforms very “branded”, if you will. I felt like this was a direction that I needed to originally go to establish the My Autism Tribe name, but upon reflection, it completely defeats the purpose of why I started My Autism Tribe to begin with. I wanted to reach people on a very human level, and I’ve done that to some extent through the podcast, but my promise to you is that I start letting you in to my personal life more. I’m always asking guests and followers to share their stories, but what about mine? At first, I thought, “Why in the world would anyone want to see my everyday life”, but then I realized that this is the very thing that I gravitate towards when I’m searching for connection with others. I can’t promise that you still won’t see branded content, because I still very much believe it’s important as a nonprofit, but I can promise you that I will be sharing more of my family. It’s going to feel weird initially, because I’ve never been one to share details of my life with just anyone, and there are some details that I will still hold close to my chest that are just too personal to share and may involve others, but well, welcome to my family’s life. I apologize in advance (laugh). The same goes for the podcast. It is still my mission, and always will be, to have guests that are all uniquely tied to the autism community. Parents, siblings, relatives, providers, and most importantly self-advocates. That won’t change. I will, however, be doing some smaller “snapshot” episodes now and again that will have the theme “Just Ask”. These episodes will feature talking points or questions that have come from people like yourself, in the autism community, followers, etc. This is another way that I feel like I can not only connect each of you through this platform, but also connect on a deeper, more personal level. So, be looking for some of these prompts on the social platforms. I’ll also be trying to do more videos, both personally and professionally, meaning that some will look like complete poo. The other videos will probably look a bit more polished, and those will more than likely be branded to some extent for the nonprofit’s use and distribution. They always say that the best way to grow is the learn from your mistakes, failures, detours, and 2019 has had them. BUT, it was the first year, and I believe there were a lot of successes as well. I’ve met so many absolutely, incredible, inspirational, beautiful people this year, and I know that this year (2020) will be filled with the same. Constantly evolving, forever growing, and learning. I’m SUPER excited to announce some BIGGER things that are in the works for 2020. #1 – I’ve been writing a children’s book series this last year, and they will be (fingers crossed) pushing into illustration within the next month or so. These books will be for children both on and off the spectrum, providing a window and a mirror to autism. A mirror for children that are on the spectrum – allowing them to see the beauty of their differences, and a window for children that are not on the spectrum – allowing them to look into the world of someone that IS on the spectrum. These books began by me writing a story for my son to explain that his differences weren’t bad but beautiful, during a time that I felt like he was beginning to become more aware that he had differences. Each book will contain consistent and fun characters that children are able to closely relate to. #2 – I’ve been working closely with a group of real estate developers and another organization to push for the development of an autism residential community where I live. This community will provide residential options and programs for those on the spectrum. We are nowhere close to breaking ground, but I wanted to share this with you, because it’s something that I’m very proud of, and excited about for our community. I’ll continue to update you as I have more details. All in all, I want to thank each of you for listening to the My Autism Tribe podcast, and being patient with me as I continue to navigate this crazy journey both professionally and personally. It’s something that I’m so passionate about, and I want to continue to educate, encourage and inspire others…just as so many people have done that for me. Here’s looking to a bright 2020, with a vision of hope for our ourselves and our loved ones. I love each and every one of you. Thank you for being a part of My Autism Tribe.

EPISODE 45: SHARING AN AUTISM DIAGNOSIS   INTRO: Hello, Friends! Thanks for joining me. This is the last podcast for the 2019 season. I want to take this time to thank each and every one of you for an amazing ride in 2019 – the first official year of this podcast and the My Autism Tribe nonprofit organization. I’m really excited about all of the advocacy plans that we already have for 2020…I’ll give you a hint on a couple: plans for a residential autism community, and an entire children’s book series. Buckle up for a wild and exciting year. As we finish out this year, I thought it would be fitting to take a podcast break before we start our second season. This time is going to be used to soak in every minute with family during the holidays. I want you to do the same. Don’t worry, we’ll still be on our social platforms, encouraging, empowering and supporting our friends. And without further ado, let’s get started with this podcast. It’s a solo episode and I’m talking about receiving an autism diagnosis, and sharing this diagnosis with family, friends, coworkers, really anyone that is involved in you or your child’s life. I’ll also share some tips that I’ve learned from personal experience, in addition to tips that others have shared. And you’re enjoying this podcast, we kindly request that you rate and review us wherever you listen to podcasts, and share with a friend. That’s how we make our voice stronger. Thanks for listening! SEGMENT: One thing is certain, any kind of diagnosis received, whether for yourself, your child, another family member, or friend, can and will lead to questions. Three and a half years ago, my son received his autism diagnosis, and I wasn’t prepared for what followed. As many of you know, you’re immediately thrown into the unknown world jam-packed and overloaded with libraries of information – whether you want to be or not. It’s part of it. Plain and simple. The days that follow can be some pretty dark ones. As you’re wrapping your head around the very definition of autism, which let’s face it, is a pretty loose one…it’s a SPECTRUM, right? You’re asking doctors questions, asking yourself questions, and then…people start asking YOU questions. Questions that, I guarantee, you aren’t prepared for. YOU are only in the beginning stages of answering questions that you have. I wasn’t sure how to answer most of them, and to be honest, my son’s diagnosis wasn’t something that I was even comfortable sharing with others until I had taken the time to process it. I’ve spoken with many individuals on the spectrum, heard their stories on receiving the diagnosis (sometimes much later in life), heard stories from parents on their child’s diagnosis, and all of them have had different journeys, but they also share many similarities. The most common similarity being that it was just flat out challenging to explain autism to their family and friends. And they were even undecided initially if they should say anything at all. I get it – and I bet most of you all do, too. Autism is definitely something that people are becoming more aware of, but just as you were in the early stages of diagnosis, they may have a limited understanding of what it looks like. And there’s a lot of misinformation out there as well that has skewed people’s perceptions. Media has recently helped with overall awareness – characters being written in to scripts for films and television shows, even times with the lead character being on the spectrum. But conversations can inevitably have Rain Man throwbacks, and questions of certain savant qualities. We all know these responses to the stereotypes of what autism is, and that maybe your child doesn’t fit in that box. A little sidebar, by the way. You’ll hear me reference “your child” throughout this, and I apologize in advance. I know there are many listeners that don’t have a child on the spectrum. Maybe they themselves are on the spectrum, or their grandchild or co-worker’s friend. I’m only speaking from the “your child” perspective because this is from my viewpoint as a parent, but this discussion may be used across the board, so to speak. Ok, so where were we? Sharing an autism diagnosis. It’s a conversation that is likely to be difficult and most certainly emotional, but just know that through this conversation, you will begin healing AND getting your tribe in order. It’s really important to have the people that you are close to as allies, because they are just as important as you are in advocating. The whole saying “it takes a village” is true. It takes your tribe. You may be told that you are overreacting, and children develop at different paces. That’s true. People may say that just because your child is a little different doesn’t mean he or she needs a diagnosis. That’s true. But you know your child better than anyone, and there are likely some challenges they are having that are not visible to everyone in your family – only known to your eyes and your heart. So, let’s talk about some of the ways that you can better equip yourself and others for this conversation. The first question that I often heard was, “Autism diagnosis. So, what does that mean?” It’s a pretty loaded question for a spectrum diagnosis. I usually start with explaining the behaviors, instead of pulling out statistics and handing out pamphlets of information. My son, as an example, had a hard time transitioning from one thing to another, one place to another, and had extremely limited eye contact…at least initially. I explained these challenges as being a part of the spectrum…at least for him. After using examples of some of his behaviors, I would then segway into some of the “basics”, like social skills and restricted or repetitive behaviors. Because of his lack of eye contact, as an example, my son might not respond in ways that a typically developing child would. He had a severe speech delay, and with his lack of eye contact, social situations were difficult. He also has a restricted diet, so if we went to a birthday party of a social event, when other children were eating pizza my son may be eating Chex Mix. Vocal stims may be a part of everyday life, or wanting to talk for hours on end about dinosaurs. Autism is a spectrum, so explaining to them that not all people exhibit these behaviors, but these are some common ones. This may not fit their stereotype of what autism is, so you might be met with some resistance. I didn’t have this experience of resistance (at least nothing major), but I’ve heard from families where even immediate family members struggled to understand, to accept, and to move on. Give them time to process. Just like you are processing, they need to as well. Just like you may have had feelings of sadness, anger, frustration – they could be finding a way to make sense of it. This may take a lot longer for some people, but be patient. They’ll find their way. In the meantime, ask them if they will support your child, because they are important. Diagnosis or not, your child deserves to be loved unconditionally. I’ve even heard of some family members (immediate and extended) being involved with doctor visits. It has helped them understand a little more about what is going on, and how they can support. Many people ask why a diagnosis is even needed – that you don’t need to put a label on your child. Well, I never wanted to label my child, but apparently insurance companies do. Without a diagnosis, my son wouldn’t have had the services he has had…the services that has allowed him to reach his potential. If it takes a label (a diagnosis), then so be it. I’ve also never whispered the word “autism”, afraid that it might hurt my son’s feelings. I’ve actually spoken of it as a super power of sorts. Through truth and understanding, I feel like my child has become stronger, and in turn can be stronger for others that may not be. That’s just a choice that I made in our journey. Another question, that I still fear years later, is “what caused it”? Uuuuuuugh. I can’t tell you just how much I hate this. There are SO many studies, SO many opinions, that it’s even a difficult topic of conversation within the autism community itself. Short story is – they don’t know. A slightly more expanded version is – it’s a neurodevelopmental disability, and it’s not caused by bad parenting. Maybe I’m still a little sensitive to this question due to the fact that I spent a whole year after receiving my son’s diagnosis researching on ways to blame myself, and I never want others to feel this way. I wish that I had known then what I know now. I’ve heard from others that they wish they had taken some time away from the internet, because just as the internet gives us so much valuable information, there’s a lot of guck out there as well. The fact is, I love my son, with or without a diagnosis, with or without a reasoning for what causes autism. He’s beautiful, and so, so special. No matter how you share an autism diagnosis, make sure you find your people that “get it”. The people that need no explanation, but rather a want to help support you and your family. Sometimes, it might not be family members. Sometimes it’s those strangers that you meet along that way that will give you the largest support. People like you. I’ve had the pleasure and privilege of making so many friends through My Autism Tribe and this podcast. My son is what keeps me going, but you are also what keeps me going, and I hope that I’m helping support you. We’re in it together, one voice made stronger. Much love to you all. Thanks for being a part of My Autism Tribe, and I’ll see you…next year, in 2020!

EPISODE 44: AUTISM, ART & HONESTY   INTRO: Hey, everyone! Thanks so much for joining me today. I’m speaking with Megan Heinz, an autism mom who has been dedicated and passionate about creating accepting and inclusive environments for her son on the spectrum. She’s also gonna share a super cool way that she has been able to connect with her son through art. And, also a reminder, if you’re enjoying this podcast, please rate and review us wherever you listen to podcasts, and share with a friend. That’s how we make our voice stronger. Thanks for listening! SEGMENT: I first connected with Megan Heinz on her Instagram page entitled “Above Typical”; a page that she created to inspire others and connect through autism, art and honesty. A place to laugh and to learn. She shares the real, un-sugarcoated everyday life of her family, and I love how she has taken a somewhat unique approach in bonding with her son through art. I can’t wait for her to share her story on how she fell into this. Please welcome this episode’s amazing guest, Megan Heinz.   CONCLUSION: Parents have a huge influence over a child’s development and happiness. But this influence can look extremely different from family to family. No textbooks, no manuals, but each family trying to figure out how to best parent their child that has come into this world with their own temperaments, their own personalities, and their own strengths and weaknesses. We teach our children, and they teach us. That’s what is so awesome! To everyone out there putting forth what I know to be an amazing effort to support our children, thank you. Keep up the great work, and thanks for being a part of My Autism Tribe. See ya next week!   ADDITIONAL INFORMATION: www.abovetypical.com https://www.instagram.com/abovetypical/ https://www.facebook.com/abovetypicalfamily

EPISODE 43: AUTISM PARENTING…AND A SIDE OF FRIES   INTRO: Hello, my fellow tribe members! Thanks for joining me today. I’m gonna start right off and say this week’s episode is gonna to make you laugh your socks off. Today, I’m speaking with Eileen Shaklee, also known as “Mama Fry” to all her blog followers. She’s the proud mom of a teenage son with autism, and shares with us how humor (and a side of fries) has helped her family in everyday life. And if you’re enjoying this podcast, please rate and review us wherever you listen to podcasts, and share with a friend. That’s how we make our voice stronger. Thank you so much for listening! SEGMENT: Autism can be isolating at times. There are great days, and then the not-so-great days that leave us scratching our heads and questioning if we’re doing enough…if we ARE enough. But one thing that I believe is super important is finding the humor in all of it. Sometimes it’s difficult to laugh when everything around you is hitting the fan and causing what feels like mass destruction…but you CAN. Eileen Shakle started a blog several years ago as an outlet to connect with others that were experiencing the same things, and people…she’s FUNNY. I love her viewpoint on everyday life, and I know that you will, too. Please welcome, Eileen Shaklee…or as many know her…”Mama Fry”.   CONCLUSION: Don’t get stuck in the trenches. Sure, it’s important to experience emotions, vent frustrations, but take the time to find goodness every day. Those little things that you can laugh about…maybe it’s at a later time rather than in the moment…but those things or people that will make you chuckle. Life’s too short to stand under a rain cloud all the time. Find the sunshine. Thanks for being a part of My Autism Tribe, and I’ll see ya next week!   COOL ANNOUNCEMENT: My Autism Tribe has been recognized in the "Global Top 20" autism podcasts on Feedspot! https://blog.feedspot.com/autism_podcasts/    ADDITIONAL INFORMATION: www.autismwithasideoffries.blogspot.com https://www.facebook.com/AutismWithASideOfFries/ https://www.instagram.com/autismwithasideoffries/ https://www.twitter.com/frenchfryinc/

EPISODE 42: A FAMILY’S AUTISM JOURNEY INTRO: Hi, there! Thanks for joining me. Today, I’m speaking with Laurie Hellmann. She hales from Indiana, and is a proud autism warrior mom who recently wrote a memoir documenting the journey her family has been on since her 16 - year old son, Skyler, was diagnosed with autism in 2006. I’m so happy to have met yet another powerful advocate, and I hope that you enjoy listening. And you’re enjoying this podcast, we kindly request that you rate and review us wherever you listen to podcasts, and share with a friend. That’s how we make our voice stronger. Thanks for listening! Today’s podcast is brought to you by Audible – get a FREE audiobook download and 30 day free trial at www.audibletrial.com/MyAutismTribe. Over 180,000 titles to choose from for your iPhone, Android, Kindle or mp3 player. SEGMENT: Laurie Hellmann has spent the last 14 years fiercely navigating through therapies, medications and countless other medical and personal challenges with her son, all while continuing to fight for and be the voice for other families with a loved one on the autism spectrum. She also has a 14-year old neurotypical daughter who is just now starting to express that being a sibling of autism is not for the weak because it means that every day is a whirlwind and you never know what to expect. Most recently, Laurie started a podcast called “Living the Sky Life” to further document and bring a voice to the often-unspoken struggles that families with special needs children, and specifically teenagers, face day to day. Let’s welcome Laurie! CONCLUSION: The roles of advocacy can have many forms, but all are important. There are those of us who are talkers, those of us who are the silent giants working magic behind the scenes, but all of us who spend countless hours advocating for those we love – and some we have yet to meet. I’m so proud of each and every one of you, for your dedication, for your heart, and for your support. Thanks for being a part of My Autism Tribe, and I’ll see ya next week! ADDITIONAL INFORMATION: Facebook:  https://www.facebook.com/livingtheskylifeautismjourney Instagram: https://www.instagram.com/living_the_skylife_autismtrip Email:  livingtheskylife.autismjourney@gmail.com

EPISODE 41: WHEN I FEEL DEFEATED   INTRO: Hello there! Today, is a solo episode. Just me, talking about my feelings of defeat. We’ve all been there, am I right? Maybe you’re there right now, listening and thinking, “is this going to be another person telling me how to not feel defeated, giving me a checklist on ways cope?” Nope. None of those. I’m just here sharing my feelings on defeat, and offering my recent viewpoint on this feeling.   And if, by chance, you feel like you’ve connected in some way on what I’m sharing, I’d love for you to take one minute to rate and review this podcast. Maybe even share it with a friend. This podcast is one way that we make our voices stronger, and to connect with those that are traveling alongside us in our crazy journey of parenting. Thanks for listening.   SEGMENT: Let’s face it, parenting is tough stuff. You can go into any bookstore or newsstand and peruse hundreds of books and magazines with “Tips on How to Be an Exemplary Parent”. Try Googling “parenting”. Have you ever tried this? Just type “parenting”. You’ll be introduced to millions of articles, studies, Amazon links, parenting blogs, you name it – everyone is trying to figure it out. Professionals are telling you the parenting style that creates the most well-adjusted children, and I even read an article recently that said for better or worse, parenting changes your child’s DNA. Think about that. It’s no wonder that we have feelings of defeat Every. Single. Day. And let’s talk about Pinterest. Have any of you tried to make these elaborate birthday cakes that have a simple 5 Steps to a Magical Creation, only to have your child ask what it is that you just created? Raise your hand…you know who you are, and I’m included.   Granted, there are days when I say to myself, and even out loud with a pat on my back, “Susan, you know what? You’re not a terrible mom. You are a downright ok-ish mom”. Did you hear that? “Ok-ish”. Why is it that we don’t allow ourselves to say that we are awesome? That we are absolutely slaying this whole parenting thing? Well, let’s talk about stress and fatigue for a hot second.   Stress and fatigue enter (and sometimes lingers) in our lives when our demands exceed the expectations and resources available to us. And let’s face it, Pinterest has not helped, and as special needs parents, we often struggle to find enough resources available to help us. It’s hard to manage a home with an increasingly amount of clutter building, a list of chores longer than the Great Wall of China, work responsibilities, holiday preparations, school functions. I’ve read blogs and watched TV shows on how to create more organization, like Tidying Up with Marie Kondo (which by the way, is she even real…is someone really THAT organized)? Something that I’ve come to realize…and just recently…is that there is no ONE cookie-cutter approach to all of it. I’m tired of trying to fit in the box that social media and TV shows tell me I need to be in in order to feel like a great mom, a worthy friend, a socially-acceptable human being. Sometimes that box just doesn’t feel right. Plus, our social norms are constantly changing, right? What Hollywood is defining as beautiful and the articles that are telling us what is right will inevitably change. For example, remember when everyone freaked out years ago trying to eliminate ALL fat from our diets. Everything on the shelves in stores turned to “Fat Free”? Now, it turns out that we actually need fat in our diets – the healthy kind, of course. I challenge you to go down that Google rabbit hole.   I tell my son all the time that we are all different, and differences aren’t bad, but beautiful. So why can’t I take these words and apply them to my own life? Why is it that I keep coming back to these socially-created definitions of perfection? It always leads me to the same abandoned house, filled with feelings of defeat. I’m so tired of it. I’m tired of even acting like I have all my stuff together…because I don’t. And I’m not afraid of admitting that to ANYONE. Maybe this is what it’s going to take to change my mindset…like a detour from the path I’ve been traveling. There will be days that are easier, and then there will be days where I feel absolutely freaked out because it’s hard, hard, hard work shaping another human being, my child, my heart, the very reason, in fact, that I feel like most days I’m still breathing.   So, let me take a look at another way of viewing the stress and feelings of defeat. What if, the whole parenting thing is not just about shaping my child, but shaping me as well? That I’m actually becoming a better woman, a better parent, just by being a parent and the challenges (and celebration) it gives. I can’t tell you the number of times that I’ve given a stink eye to someone who told me “what doesn’t kill you makes you stronger”. No one wants to hear that from someone else, but maybe I can tell myself that. The stretching and growing from parenting is actually a great thing. It’s a gift, a blessing, that my home needs me.   Let’s look at defeat as power. I think about the times, when I was a child, and even as an adult, where I failed. It did build strength. It did build character, and almost a stubbornness to overcome – to succeed and win. I come from a long line of STRONG women – women that didn’t take “no” for an answer, trail blazers in their time. They weren’t strong because they never failed. They became strong because they experienced defeat, more times, I’m sure, than they admitted. I’m woven from their cloth – a piece of their patchwork quilt.   Most of us cling to the idea that skill comes naturally. We’re born with it. Either we’re good, or not good, at something. Well, that’s simply not true. Even people that are born gifted have to work hard to hone their ability. We’re not born as parents. We have parents when we are born. These trials we experience are honing our ability to become better.   CONCLUSION: So, let’s all take the time to lift each other up, to give each other high fives, to smile as we’re passing by that person in the grocery store. We all have feelings of defeat, and we’re just honing our ability to become better. For ourselves and for each other. Thanks for taking the time to listen, and for being a part of My Autism Tribe. You all are very much appreciated. See ya next week!

EPISODE 40: AN AUTISM MOM’S DEDICATION TO NUTRITION With Autism Mom Crystal Jordan of “Foods Four Thought”   INTRODUCTION: Hey, everyone! Thanks for joining me today. Today we’re speaking with Crystal Jordan. She’s the proud mother of an amazing son on the autism spectrum, and she has been working tirelessly on something pretty cool that has provided her son with awesome results. She’s a dedicated mama! Also remember, if you’re enjoying our podcast, if you could take some time to rate and review us wherever you listen to podcasts, and share it with a friend. That’s how we make our voices stronger. You can also find us as My Autism Tribe on Facebook, Instagram, Twitter, and YouTube. And as always, thank you so much for listening!   SEGMENT: Most of us have been in those states of desperation, and likely many of us are still there, where we are working on the perfect formulas of therapies, supplements, and diets that will work for our loved one on the spectrum. Asking ourselves, “What if we do this therapy, with this vitamin, and eliminate this from their diet? What if we skip this therapy, but go to this doctor?” I literally have binders of information and spread sheets that I’ve collected in our short 3-1/2 years on this autism journey. Some may have viewed it as an obsession, but I don’t think so. I view it as dedication – to make sure my son has the best there is so that he can reach his full potential. I view it as LOVE. Today’s guest is Crystal Jordan. Her passion to provide help for her son is inspiring, and I can totally relate to the love she feels for her little one. Please welcome Crystal Jordan.   CONCLUSION: Sometimes those states of desperation can provide us with information or insight into what our children or loved ones need. It takes time, dedication, and patience but it’s all so worth it. Never stop trying, always have hope, and dig deep. I believe in everyone – keep up the great work and thanks for being a part of My Autism Tribe. I’ll see ya next week!   ADDITIONAL INFORMATION: https://www.foodsfourthought.com https://www.facebook.com/foodsfourthought/ https://www.instagram.com/foodsfourthought/

EPISODE 39: AUTISM FRIENDLY BUSINESSES w/ guests Melanie West and Monica Cooper with FEAT of Louisville   INTRODUCTION: Hey, everybody! Thanks for joining me today. We’re speaking with Melanie West and Monica Cooper – both of an organization called FEAT of Louisville and the initiative of Autism Friendly Business in the state of Kentucky. They’re doing some really cool things, so stay tuned. And remember, if you’re enjoying our podcast, please rate and review us wherever you listen to podcasts, and share with a friend. That’s how we make our voice stronger. Thanks so much for listening!   SEGMENT: FEAT of Louisville, FEAT being an acronym for “Families for Effective Autism Treatment” is a non-profit organization that actively supports and funds autism programs for the entire family. Created for families by families, FEAT of Louisville is dedicated to easing the autism journey through ongoing support, education and programs. FEAT was founded in 1999 by a small group of parents searching for answers to their children’s complex medical and educational needs. Melanie West joined FEAT in February of 2018 as the Autism Friendly Business Initiative Program Manager, and Monica Cooper is an autism parent that is now serving as the Community Outreach Coordinator. These ladies are powerhouses, and I can’t wait for you to listen of the impact they are making in the autism community.   CONCLUSION: Organizations like FEAT with program initiatives like Autism Friendly Businesses are doing amazing things for entire communities. It’s our goal to make our communities more inclusive, right? To make people aware and accepting of everyone, right? A huge thanks to FEAT of Louisville for doing such great work, and really changing the tide through their education and support. Keep it up – we’re rooting for you! Thanks again for listening, and for being a part of My Autism Tribe. I’ll see ya next week!     ADDITIONAL INFORMATION ABOUT FEAT, MELANIE, AND MONICA: www.featoflouisville.org | www.autismfriendlybusiness.com  FEAT Newsletter | Facebook | Instagram  AFBI Facebook | AFBI Instagram     Monica's bio: My name is Monica Cooper. I am a mom of three boys, Isaac, Ian and Elijah. Isaac and Ian both have Autism. When we received the first diagnosis over 8 years ago my husband and I were not sure what to do or where to go for help. A friend told us about FEAT and the programs and support that they offered. We immediately decided to get involved. At first this was a slow process for us because we were still trying to navigate and wrap our minds around what Autism was. Two short years later our next son would receive the same diagnosis. This hit us pretty hard and we soon discovered we needed to get off of our “island” and needed to surround ourselves with other families just like us that were all on the same journey. FEAT allowed us to take our children swimming, to the Science Center to the park and even participate in our local ST. Patty’s Day Parade in a fun, yet safe environment. My children have been able to go out into the community and feel loved and accepted by other families. FEAT has not only given my family a sense of belonging, but it has ignited a passion within me to help bring others families that have children with Autism together. The families that are a part of FEAT have become an extended family to me. I want to give families the same HOPE, that was given to me.   Melanie's Bio: Melanie earned her B.A. in Communications from the University of Louisville. After a career in the banking industry with Fifth Third Bank and JP Morgan Chase she took a different career path to become the CEO of her family. Melanie continued to be involved in the community volunteering at Dunn Elementary and actively serving on their PTA Board. Being a Louisville native, she is passionate about this city and directly impacting families. The West family has been part of the FEAT movement for years, volunteering and participating in the 5K and FEAT Galas. Melanie joined FEAT of Louisville in February 2018 becoming the Autism Friendly Business Initiative Program Manager. “I am truly passionate about engaging and partnering with local businesses to bring Awareness, Acceptance, and Appreciation for the vast Autism Community.” In her free time, Melanie enjoys spending time with her family, cooking, B.You Fitness, hiking, dancing, skiiing, traveling, the beach, and an active member of Northeast Christian Church. Melanie is married to the love of her life Mark and has two children.

EPISODE 38: ROB GORSKI (The Autism Dad) “The Importance of Self Care for Autism Parents”   INTRODUCTION: Hey, everybody! Thanks for taking the time to join me today. We’re speaking with Rob Gorski – an autism dad with a strong voice in the autism community. Over the years, he’s amassed upwards of one hundred million views on his blog, and has received tons of awards for both writing and his work in the autism community. And remember, if you’re enjoying our podcast, please rate and review us wherever you listen to podcasts, and share with a friend. That’s how we make our voice stronger. Thanks for listening! Today’s podcast is brought to you by Audible – get a FREE audiobook download and 30 day free trial at www.audibletrial.com/MyAutismTribe. Over 180,000 titles to choose from for your iPhone, Android, Kindle or mp3 player. SEGMENT: Today’s guest, Rob Gorski, is the proud dad of three amazing children on the autism spectrum. He began a blog in 2010 as a means of coping with everything that was going on – the raw emotions, true happiness and heartbreak. He’s brutally honest, which I absolutely love. His mission to show others of similar circumstance that they are not alone is definitely something that I can connect with, as most of us would agree. We want to make a difference. We want the best for our children. We want the whole world to know just how much compassion we have for the autism community. It can be exhausting though…leaving us questioning how to take care of ourselves, too. What does self-care look like, and what can we do about it? Please welcome, my friend Rob Gorski. CONCLUSION: We all experience exhaustion, feelings of being defeated, not good enough. That’s why self-care is so important. Those who have experienced compassion fatigue describe it as being sucked into a downward spiral, not knowing how to stop it, so they do what they’ve always done…continue to give and give and give until they’re completely tapped out. Our families need us to be playing our A-game. We need to take time to fully recharge. I’m making a commitment to everyone here to take better care of myself, so that I can be even better for my son. I challenge you to do the same. It’s not selfish to take care of ourselves. It is needed. I expect everyone here to hold me accountable, and I’ll be here rooting for you. Thank you so much for being a part of My Autism Tribe. I’ll see ya next week! CONNECT WITH ROB: https://www.theautismdad.com/ https://www.facebook.com/robgorski78 https://www.instagram.com/theautismdad/ https://twitter.com/The_Autism_Dad

EPISODE 37: “MY SON HAS AUTISM: DO NOT BULLY HIM”   INTRODUCTION: Hi, Friends! Thanks for joining me today. It’s just me. October is National Bullying Prevention month, so I thought I would do a segment specifically on my thoughts on this subject, and some of our recent experiences. Since my son started Kindergarten this fall, a subject that I’ve been especially interested in on our journey has been bullying. As a parent with a child on the spectrum, it’s been on my mind a lot. Stay tuned for some of my thoughts, along with some advice that I’ve heard and read about. If you’re enjoying our podcast, please rate and review us wherever you listen to podcasts, and share with a friend. That’s how we make our voice stronger. Thanks for listening! Today’s podcast is brought to you by Audible – get a FREE audiobook download and 30 day free trial at www.audibletrial.com/MyAutismTribe. Over 180,000 titles to choose from for your iPhone, Android, Kindle or mp3 player.   SEGMENT: There have been moments when I’m with my son where I have witnessed (and intervened) on other children…and sadly some adults…bullying him. It absolutely rips my heart out and shakes me to my core. Thankfully, in those moments, I’ve been with him…so then my thoughts turn to “What if I hadn’t been with him? What would have happened? Would he have stood up for himself, or would someone else have intervened?” We can’t be with our children every minute of every day, and we all know that words (good and bad) can be carried with someone their entire life. Of course, bullying doesn’t just happen to individuals on the spectrum, it doesn’t just happen to children…but what can we do about it? Let’s first start with the very definition of “bullying”. I’m talking about the Webster’s definition. To bully someone means: seek to harm, intimidate, or coerce (someone perceived as vulnerable). The facts tell us that children with disabilities are much more likely to be bullied than their nondisabled peers. When looking within a school setting, one study shows that 60 percent of students with disabilities report being bullied regularly compared with 25 percent of all students. As parents and caregivers, we have a right to ensure that the school our child attends provides a framework of protection. All children have a right to receive a free appropriate public education (FAPE) in the least restrictive environment and free from disability-based harassment. Personally, I can remember (middle school primarily…because, let’s be honest, those are tough years for any child) when I was bullied. I was backwardly shy, glasses, braces, a bad perm, good student…you name it…I was the poster child that screamed “nerd”. I got made fun of…and I cried…sometimes in a school bathroom stall, in the gym locker room, at home. It sometimes made school not so fun. I carried a lot of that with me for a long time, and though I know I can’t protect my son from all of the nastiness that life can bring, I do want to make sure that I equip him (and others) on handling situations like this. Bullying, I used to believe, used to mean meeting someone on the playground and beating them up, or stealing someone’s lunch. As I’ve grown older and have become more educated and aware, I’ve recognized there are many complexities and various forms of bullying. Bullying not only includes direct contact or physical assault, it can be milder and more indirect: social exclusion, subtle insults, teasing, and the spreading of rumors. Laughter at another person’s expense is a form of bullying. And now that most individuals have online access, we have issues with cyberbullying. I have to admit, I’m so glad that social media wasn’t around when I was growing up. At my son’s school, they have a couple of apps they use to update families on special events, reminders, updates on their child, pictures from their day. They’re really awesome, and my son’s teachers do an incredible job of keeping the lines of communication open. Alex seems to be really happy at school. But one day recently, a video was posted on one of these apps that showed the entire class singing a song they had learned. I was watching it with Alex, and was commenting on how sweet and special this video was. It was then that he pointed to a specific girl in his class. Now, please note that Alex is now verbal, but can still very much struggle with piecing together sentence structures, especially when it comes to more (as I say) colorful language. He points at this girl and says, “She squeezed my arm and called me stupid.” I immediately replayed the video, and again he pointed to the same girl and said the same thing. I froze. This was the first real conversation that I had had with Alex about bullying. We’ve talked a lot about self-advocating, saying “stop” when he doesn’t want something, but we hadn’t (before this time) talked specifically about hurtful words that people can say. I asked him what he did, not sure if he was going to be able to describe it. He said that he told his teacher. I told him that was exactly what he was supposed to do. I told him that her words were wrong, that he wasn’t stupid – that he was, in fact, very smart.  I now have an open dialogue with his teacher, and we are both working on dialogue with Alex. His teacher did respond appropriately when Alex told her, so we’re on a good path, but my thoughts still go back to, “What if she hadn’t? What if Alex wasn’t able to tell her?” I still have a fear, but I can now rest a little easier knowing that it was handled (this time) appropriately. The adult response is so very important, and it’s important that adults know how to talk with someone in a bullying situation. I’m not sure that I handled it exactly right, as I’m still learning, but the child should know that it is never their responsibility to fix a bullying situation. They should seek the help of an adult, and I’m beyond proud that Alex did just this. You see, Alex loves to learn. He loves school, and I know in a great environment he thrives, but research has shown that bullying can negatively impact a child’s access to education and can lead to: -School avoidance and higher rates of absenteeism -Decrease in grades - Inability to concentrate - Loss of interest in academic achievement and an - Increase in dropout rates Students with disabilities have legal rights when they are a target of bullying, and most states even have laws that address bullying – specifically to students with disabilities. School districts can have individual policies that address how to respond to bullying situations. In our case, we were provided a packet of information from our local district on their policy on bullying. If you’re not sure, contact them and request a written copy. Most of you are probably familiar, if your child is in school, on IEPs (Individualized Education Program). Students with disabilities, who are eligible for special education under the Individuals with Disabilities Education Act (IDEA) will have one of these. The IEP can be a helpful tool in a bullying prevention plan, and if bullying is becoming an obstacle to a child’s education, then it can be incorporated into their IEP. There could be goals for social skills, speech and language skills, and self-advocacy skills written in the IEP so they know how to address a bullying situation. There is a woman by the name of Dr. Michelle Borba that has even designed a prevention approach that she has labeled CALM. It’s an acronym, C-A-L-M, of simple rules that can be taught to students with autism: -The first step in the CALM approach, the “C”, is to “Cool Down”. Teach your child to recognize stress signals like sweaty hands, rapid heartbeat) and learn calming strategies like deep breathing. - The second step, the “A”, is to “Assert Yourself”. Part of the social skills curriculum can be teaching assertive body language. This doesn’t mean to start throwing punches. Role playing and video modeling can assist in teaching non-verbal body language that can deflect bullying attempts. - The third step, the “L”, is to “Look Them in the Eye”. Eye contact can be challenging for some students with autism, but using visual supports can be beneficial in teaching eye contact during a bullying attempt. - The last step in the CALM approach, the “M” is “Mean It”. Language scripts can be taught such as “stop that”, “leave me alone”, or “get away from me”. But maybe the most important thing in all of this discussion about bullying, is having your child know they are loved. We all have bad days. We have all been bullied, and they are not alone. I know, at least from my own personal experience, that we often believe we are the only one this is happening to, and that no one else cares. That couldn’t be further from the truth. It’s not up to one person to end bullying, and there are individuals, entire communities and organizations that care a lot about this very specific subject. No one deserves to be bullied – absolutely no one. All people should be treated with respect, no matter what, and we all have a responsibility to work together on creating positive change. This is not about, “If I have time, I will”, “If it’s my child, I will”, no. It takes a village. It takes My Autism Tribe. Thank you for being a part of mine, and for walking beside me as I try to make a difference for not only my son, but for others. Much love to everyone. See ya next week!

EPISODE 36: RON SANDISON (Self-Advocate) “An Amazing Journey with God…and Autism”   INTRODUCTION: Hey, everyone! Thanks for joining me today. We’ll be speaking with Ron Sandison – a powerful self-advocate. He works full time in the medical field and is a professor of theology at Destiny School of Ministry. Stay tuned for his story! If you’re enjoying our podcast, please rate and review us wherever you listen to podcasts, and share with a friend. That’s how we make our voice stronger. Thanks for listening! Today’s podcast is brought to you by Audible – get a FREE audiobook download and 30 day free trial at www.audibletrial.com/MyAutismTribe. Over 180,000 titles to choose from for your iPhone, Android, Kindle or mp3 player. SEGMENT: Today’s guest, Ron Sandison, is the author of A Parent’s Guide to Autism: Practical Advice. Biblical Wisdom published by Charisma House and Thought, Choice, Action. He has memorized over 10,000 Scriptures including 22 complete books of the New Testament and over 5,000 quotes. Whoa. He frequently guest speaks at colleges, conferences, autism centers, and churches. Ron and his wife, Kristen, reside in Rochester Hills, MI, with their cute, 2-year old daughter, Makayla Marie. I’m so excited for you guys to listen to his story! Let’s give a warm welcome to Ron! CONCLUSION: Like many children with autism, Ron lacked the ability to decode body language and interpret social clues, which resulted in ruthless bullying by his peers. If daily routines were altered, he experienced painful meltdowns. Things really started to change when he discovered his special interest in track. He, along with his amazing support system, never gave up. Now, thanks to the help of his parents and the grace of God, he is living his dream working as a professor of theology, serving in the medical field, and enjoying life as a husband and father. Dreams come true, people. Stay the course, don’t lower your expectations, and keep your eyes open and bright for the future. Sending much love to all our listeners. Thanks for being a part of My Autism Tribe. See ya next week! ADDITIONAL INFORMATION: ABOUT RON: Ron Sandison works full time in the medical field and is a professor of theology at Destiny School of Ministry. He is an advisory board member of Autism Society Faith Initiative of Autism Society of American. Sandison has a Master of Divinity from Oral Roberts University and is the author of A Parent’s Guide to Autism: Practical Advice. Biblical Wisdom published by Charisma House and Thought, Choice, Action. He has memorized over 10,000 Scriptures including 22 complete books of the New Testament and over 5,000 quotes. He frequently guest speaks at colleges, conferences, autism centers, and churches. Ron and his wife, Kristen, reside in Rochester Hills, MI, with a baby daughter, Makayla Marie born on March 20, 2016. You can contact Ron at his website http://www.spectruminclusion.com or email him at sandison456@hotmail.com COMPLETE BIO: My development began normally and continued until I was eighteen months old. At that time, I began to regress rapidly. I lost my ability to communicate with words, and I ceased to engage in eye contact, a skill I had previously learned. (About 20% of children with autism experience a similar period of regression.) When I entered kindergarten, the Rochester School specialists labeled me emotionally impaired. My mom refused this label, informing the professionals, “My son’s disability is not emotional but neurological.” She diligently researched the top professionals for learning disabilities and paid to have me tested. Neuropsychologist Dr. Jerel E. Deldotto from Henry Ford Hospital confirmed that my disability was indeed neurological. Educational specialists and doctors informed my parents that I would probably never read beyond a seventh grade level, attend college, or participate in athletics. Even so, my mom was determined to help me to excel in life. She empowered me to develop my unique gifts for independence, employment, and relationships. As Dr. Temple Grandin said, “In special education, there’s too much emphasis placed on the deficit and not enough on the strength.” The Prairie Pup Years When I was seven years old, my mom gave me a stuffed animal of a prairie dog for Christmas. This toy sparked a special interest in prairie dogs; I could tell you every detail about prairie dog life. In the 80’s most boys played with GI Joe, He-Man, Star Wars toys, Atari video games, or even a Teddy Ruxpin. But I carried around a stuffed prairie dog named Prairie Pup. As my Special Ed teacher Ms. Milne once told my parents, “Ron always carries an animal book in his right hand and Prairie Pup in his left.” My mom harnessed my special interest in prairie dogs and animals to teach me reading and writing skills. As a professional artist she taught me with art, drawing pictures of prairie dogs to illustrate concepts. In fifth grade, I won the Detroit Edison Drawing contest for Oakland County by creating a poster of Prairie Pup and his furry friends. For the prize Prairie and I met captain of the Detroit Pistons basketball team and future Hall of Fame inductee Isaiah Thomas. In sixth grade, I was deemed too old to carry a love-worn stuffed animal, so Prairie Pup was officially ‘expelled’ from the Rochester public school system. In my presentations, I joke that it’s a good thing my special interest at the time was a stuffed prairie dog and not a honey-badger. It would have been hard for the school administration to expel an agitated, aggressive, wild beast! My mother Janet Sandison recalls: One of my son’s favorite activities was dictating short fictional stories about his stuffed animals and drawing illustrations. I wrote Ron’s short stories in spiral notebooks. Ron drew the main characters: Chatter the Squirrel, Little Gnawing Beaver, Bouncing Bear, and Prairie Pup. I was able to teach Ron new vocabulary through writing and also helped his imagination to blossom. By watching me write, Ron was able to learn reading comprehension and memorized the spelling of words. During elementary and middle school, I had difficulty developing friendships with peers due to my social awkwardness and sensory issues. If my daily routines were altered, I experienced painful meltdowns. I call my meltdowns, “My honey-badger moments.” Like many children with autism, I lacked the ability to decode body language and interpret social clues. As a result, I was bullied ruthlessly by my peers. Star Athlete and Faithful Christian Everything changed in eighth grade, when I began attending Heart Middle School. That’s when I discovered my new special interest: track. Bullying ceased as I became a star athlete, eventually setting three school records. In my junior year of high school I received Jesus as my Lord and Savior, and felt that my life was now on the right track, both literally and metaphorically. I made the honor roll two straight semesters, was a star athlete in track, and memorized over 2,000 Scriptures. (I currently have over 10,000 Scriptures memorized, including 22 complete books of the New Testament.) In the spring of 1994, our school’s 3,200 meter relay team finished 12th in the State of Michigan. As we drove back from the state final, Nate, the anchor on our relay, commented to Coach Budd, “Next year we could be the fastest 3,200 relay but Ron will be past the age requirement!” I heard the Holy Spirit speak to my heart, saying, “I will make a way for you.” So I said, “God will provide a way for me to compete.” Since I had repeated kindergarten, I was past the MHSAA age requirement by three months. My family prayed daily for a miracle. As my senior year approached, my mom contacted the MHSAA. In May 1994, they stated, “Due to your son being past the age requirement we will not allow him to compete!” My parents contacted attorneys and learned that a lawsuit would cost over $40,000. As the cross-country season drew near, the circumstances seemed hopeless. My mom told me, “There’s nothing we can do now but pray and trust God.” In June 1994, I returned from a five mile run and grabbed the Detroit Free Press. On the front page, I saw an article about Craig Stanley, a fellow athlete past the age requirement. Our situations were remarkably similar. We were both born in May 1975. Each of us had repeated early elementary grades, and we were both cross-country and track runners. My mom immediately contacted his family. Soon we met and joined forces in prayer and advocating. Unexpected Blessings and New Beginnings After I rededicated my life to following Christ, I felt a desire to be re-baptized to demonstrate my commitment. (I was first baptized at nine months old, on the same day I said my first word: “Mom.”) On Sunday June 10, 1994, I was baptized by Pastor Rob. As Pastor Rob lifted me from the water, he said, “I feel this verse is for you: Joel 2:25, ‘I will repay you for the years the locusts have eaten—the great locust and young locust, the other locust and the locust swarm—my great army that I sent among you.’ Your blessings will begin today.” When I got home and checked the red flashing answering machine, I had an unexpected message from attorney Rick Landau. He said, “I believe that your case will set a precedent for the Americans with Disabilities Act and I want to represent you pro bono.” As a result, we won our federal case and Craig and I were able to compete during our respective senior years of high school. My 3,200 relay team set the school record; we also ran the second-fastest time out of 182 teams. During this season, I felt a call to become a minister. Michigan Christian College, now Rochester College, gave me an athletic scholarship for cross-country and track. I finished my freshman year making the Dean’s List both semesters, and I received an academic scholarship to Oral Roberts University. Six years later, I graduated with a Master of Divinity and highest honors. On December 7, 2012, I married my wife Kristen. What’s Ahead for the Future On April 5, 2016, national publisher Charisma House will release my book, A Parent’s Guide to Autism: Practical Advice. Biblical Wisdom. In writing the book, I interviewed over 40 experts in the autism community and over 40 parents who have a child with autism. Thanks to the help of my parents and the grace of God, I am living my dream working as a professor of theology, serving in the medical field, and enjoying married life with my beautiful wife. Books https://www.amazon.com/Parents-Guide-Autism-Practical-Biblical/dp/1629986712   https://www.amazon.com/Thought-Choice-Action-Decision-Making-Releases-ebook/dp/B07GNRT3TQ

EPISODE 35: AUTISM-FRIENDLY DENTISTRY With special guest Dr. Wendy Humphrey Van Meter    INTRODUCTION: Hey, everyone! Thanks for joining me today. We’ll be speaking with Dr. Wendy Humphrey. She specializes in providing dental care for children and adolescents, and works with many special-needs kids (and parents) in the most amazing, and comforting way… not to mention that she’s incredibly sweet as a person. If you’re enjoying our podcast, please rate and review us wherever you listen to podcasts, and share with a friend. That’s how we make our voice stronger. Thanks for listening!   SEGMENT: A trip to the dentist is sometimes not the very favorite thing to do for a lot of children, and even adults, but to an autistic child it can be traumatic. Not only can the visit itself cause distress because it’s not part of the normal routine, but there are strangers putting hands in the mouth, strange sounds, tastes, bright lights, and maybe even a little pain. It’s not always fun, but there are things that you can do to make the whole experience as painless as possible. Not all dentists are comfortable with children on the autism spectrum, and even some pediatric dentists. There are questions you can ask when deciding if a dentist if the right choice for your family. Today’s guest, Dr. Wendy, in full disclosure, is my son’s dentist. She’s been amazing to work with, and I’m now happy to report that her office is no longer on Alex’s “bad list of places to go.” (laugh) Let’s welcome Dr. Wendy.   CONCLUSION: Parents and caregivers need to be aware that not all dentists have the experience or comfort-level when working with patients on the autism spectrum, and that’s ok. Just make sure to ask the questions that will provide you with information so you can make the best decision. Some of these questions may include: Do you work with special needs kids? Are parents allowed to stay with their children? How do you handle a child’s anxiety? What do you do if you encounter problem behavior during the visit? Finding the right dentist that can connect with your child will help is creating a positive dental experience. Just because you have had problem visits to the dentist, doesn’t mean that this will always be the case. Just keep working at it! Thanks for joining me today and for being a part of My Autism Tribe. I’ll see you next week!   ADDITIONAL INFORMATION: https://www.kydentistry4kids.com/   TIPS TO MAKE A POSITIVE DENTIST EXPERIENCE: Create a social story on going to the dentist with pictures. What toothpaste does your child prefer? If this makes the experience better, bring your own toothpaste to the visit and ask the hygienist to use. Perhaps buy some really basic dental instruments for home that you child can handle before the visit. Practice on stuffed animals or use them on yourself. Bring any items that may comfort: iPad, sunglasses, earplugs, lap weight, toy Ask the dentist if you can come by once a week for a “friendly” visit. This will give the child a chance to become more familiar with the environment

EPISODE 34:  HEALTH INSURANCE COVERAGE FOR AUTISM With guest State Lobbyist Bart Baldwin   INTRODUCTION: Hi, everyone! Thanks for joining me today. Bart Baldwin is joining us today. He has over two decades of experience in public policy, lobbying and executive level management in the health care and human services fields, and he’s going to provide some insight for us on public policy decisions, state funding, and how he is providing support to those in the autism community. It’s not the most fun topic, I know, but his experience, I believe, will open your eyes. And as always, if you enjoy our podcast, please rate and review us wherever you listen to podcasts, and share with a friend. That’s how we make our voice stronger. Thanks for listening!   SEGMENT: As we all know far too well, at least for our listeners in the United States, health insurance can be really complicated. Many of us have spent so many hours trying to connect the dots with insurance coverage; it is absolutely so stressful, and I personally have cried so many times to strangers on the other end of the phone just trying to make sense of it all. The insurance landscape has changed drastically over the years, and the good news is (as hard as it may seem some days), we have made some progress. As an example, at least 200 million people now have health insurance coverage for ABA because of the tireless efforts and dedication of advocates across the country. One of these advocates is Bart Baldwin. He is a long-time state lobbyist in the state of Kentucky, and his efforts and advocacy have protected the rights, services, and supports of our autism community. Previously, Bart served as the President of the Children’s Alliance, representing child welfare agencies in Kentucky, and was also the National Director of Regional Public Policy for the Washington D.C. based Child Welfare League of America. Again, I understand this is not the most interesting or fun topic (Bart’s gonna love this lead-in), but I can assure you, in my conversations with Bart, he has opened my eyes to just how much hard work is being done behind the scenes that most of us are completely unaware of. Let’s welcome Bart Baldwin.   CONCLUSION: I’ve had many people reach out to me to ask “which health insurance provides the best coverage”? Whew! There are so many things that can affect coverage based on the specific type of insurance your employer carries, to what state you live in, and the list literally goes on and on. Just know there are people there that can assist you in the navigation of it all, AND they are fighting to protect your family. I always say, “Keep the hustle”, and don’t take “no” for an answer. Progress has been made because of the people that didn’t stop, that didn’t accept no as an answer. We’re all in it together! Thanks for being a part of My Autism Tribe, I’ll see ya next week!   ADDITIONAL INFORMATION ON ABA ADVOCATES GROUP:   Purpose: to impact public policy decisions, state regulations, state law, state funding and MCO policy decisions to benefit the partners of ABA Advocates and the children and families they serve. Also, to promote the ABA profession to government and community stakeholders. ABA Advocates is:  A group of provider organizations, individual providers and other advocates who have decided to partner (not in a legal sense) together and pool their funds together to hire Bart Baldwin Consulting to lobby on their behalf and manage ABA Advocates. ABA Advocates is not: a formalized or legal association or coalition. a 501(C)3 organization or a 501(C)6 organization or any other IRS defined entity. a coalition/association to assist members with business strategy and development. What ABA Advocates can expect from Bart Baldwin Consulting: Direct Lobbying to Key Decision Makers in the: General Assembly Governor’s Office Cabinet for Health and Family Services Department for Medicaid Services Department for Behavioral Health, Developmental and Intellectual Disabilities Department of Education Medicaid Managed Care Organizations Provide Government Affairs Consultation to include: Public Policy Priority Development Political Strategy Grassroots Advocacy Development Training on effective advocacy and lobbying Management of ABA Advocates to include: Billing and collecting of fees Planning, organizing and staffing routine meetings of ABA Advocates Maintaining routine communications with all partners of ABA Advocates For more information or to become a part of ABA Advocates please contact Bart Baldwin at (502) 320-1143.

EPISODE 33: Autism Advocates – The Who, What, Where, When & Why With guest Jennifer Phelps, Founder & CEO of Engage Behavioral Health   INTRODUCTION: Hey, everyone! Thanks for joining me today. Today’s topic is all about advocacy – specifically as to the Who, What, Where, When & Why of every autism advocate. We’re speaking with Jennifer Phelps of Engage Behavioral Health in Tallahassee Florida, she’s going to share her personal story of the path that lead her to where she is today. It’s pretty cool.  And as always, if you’re enjoying this podcast, we sure would love for you to rate and review us wherever you listen to podcasts, and share with a friend. That’s how we make our voice stronger. Thanks for listening!   SEGMENT: Every autism advocate’s story is different. Sure, they share similarities, but the journey of the advocacy (the who, what, where, when, why) can sometimes be vastly different. Jennifer Phelps founded Engage Behavioral Health in Tallahassee Florida in 2008 after years of studying and working with individuals on the autism spectrum and other developmental disabilities. So that’s the who, what, where. The when started at a young age. In middle school at age 12, she began volunteering to work with individuals with disabilities in Florida, and then she read Catherine Maurice’s “Let Me Hear Your Voice”. Then her nephew received a developmental disability diagnosis, and all of that my folks, was and is her why.   CONCLUSION: Autism advocacy comes in all shapes and colors. Just like individuals on the spectrum, when you’ve met one autism advocate, you’ve met one autism advocate. As we continue to educate, support and empower our communities, reach out and find the different stories. Dig deep to find the who, what, where, when, and why. I guarantee that under every rock is an incredible story of patience, perseverance, dedication and love. Thanks for being a part of My Autism Tribe. See ya next week!   ADDITIONAL INFORMATION: https://www.engagebehavioralhealth.com/

EPISODE 32: The First Division-I Athlete with Autism: Go Spartans With guest Anthony Ianni   INTRODUCTION: Hey, everyone! Thanks for joining My Autism Tribe. Today’s episode features Anthony Ianni, the first Division-I athlete with Autism and one of the most sought-after anti-bullying motivational speakers, and for good reason. His story is a powerful one. And as always, if you’re enjoying our podcast, please rate and review us wherever you listen to podcasts, and share with a friend. That’s how we make our voice stronger. Thanks for listening!   SEGMENT: Bullying is a very real and serious problem that affects all ages, ethnic backgrounds, everybody. However, individuals with disabilities, such as autism, are one of the prime targets for bullies. Our guest today is very familiar with bullying, because he was a victim, Anthony Ianni, of the Michigan Department of Civil Rights. His story is so inspiring. Anthony played with the legendary coach Tom Izzo while at Michigan State University as the very first Division-I athlete with autism. I can’t wait for everyone to hear his story. Let’s give a warm welcome to the newest member of My Autism Tribe, Anthony Ianni.   CONCLUSION: Anthony repeatedly delivers a consistent message wherever he goes, with whomever he is speaking with, and that is that those on the autism spectrum have the same dreams, desires and goals as anybody else. Anthony’s family made a pledge they would help Anthony be successful no matter what. Well done, Greg and Jaime. We’re so proud of your son Anthony. Thanks for being a part of My Autism Tribe, and I’ll see you next week!   ADDITIONAL INFORMATION: http://relentlesstour.com/meet-anthony-ianni/   https://www.nba.com/video/2019/02/10/20190210-beyond-paint-anthony-ianni   https://www.forbes.com/sites/tomlayberger/2019/03/31/former-michigan-state-center-anthony-ianni-shares-his-story-of-overcoming-autism-bullying/#42df9652564e

EPISODE 31: MOVING WITH AUTISM “How to help your loved one cope during and after a move.”   INTRODUCTION: Hey, everyone! Thanks for joining My Autism Tribe. Today’s topic is how to help your loved one with autism cope during and after a move. As in, packing up an entire house and moving to an entirely different location. Stay tuned for some helpful tips! And as always, if you’re enjoying our podcast, please rate and review us wherever you listen to podcasts, and share with a friend. That’s how we make our voice stronger. Thanks for listening!   SEGMENT: My son and I recently moved, and I have to say there’s a reason moving is considered one of the top five most stressful situations in life. I think the other four are divorce, job loss, illness, and the death of a loved one. It’s no secret as to why. Not only is it a complete hassle, but it disrupts your life in ways that push even the most organized, experienced and sane adults to their mental and physical limits. It’s a marathon, people. And for a child, coping with the stress of moving is even more difficult. Maybe they also have to change schools, maybe there’s a co-occurring trauma happening like divorce. This is a lot, and a child’s still-developing brain is not equipped yet for the challenge of relocating their entire life. Sometime you can see immediate negative responses, like tantrums, outburst, trouble eating, not sleeping, and then others may respond more subtly over time, and can show up as depression or anxiety. We all know that every child is different, but for children with autism, the effects of moving can be even more pronounced. I wouldn’t say that moving is ever a pleasant experience, but there’s a little bit of good news. As a parent or caregiver, there are steps you can take throughout the move to make the experience easier for your child with autism. I’ve moved so many times with my son Alex, that I my process is like a well-oiled machine. Not kidding. This is almost embarrassing, but during the course of Alex’s short life (he just turned 6), we have moved a total of four times – two of those times were out-of-state moves. You get the picture. So…without further ado, let me share some tips with you, in the case that you are planning a move, or possibly anticipating a move. Create a Narrative Start with writing your own story. For children with autism, communication is critical. Put simply, you should explain to your child the who, what, when, where, why, and how of moving. Tell them where you’re moving and why. (Just be sure to be age-appropriate, of course) Let them know that the people and things they love and care about will be moving with them. Let them know when you’ll begin the moving process, how long it will take, and how you’ll pack, move, and unpack your things. And the whole time, use a positive tone that conveys that everything is going to be OK. Being aware of the process will allow your child to begin to understand it and, ultimately, come to terms with it. One of my favorite ways of doing this is to create a social story — or even several stories — depicting the transition. Many children on the spectrum are visual learners who do better with concrete information, as opposed to abstract concepts. That’s why social stories work. They take specific situations that are difficult to grasp, like moving to a new home or changing schools, and explain them. What’s more, they walk the child through the emotions they may feel, how they might expect others to act during the process, as well as healthy responses to each. When creating your own social story, consider these tips: Design your story to address one problem, situation, or desired outcome. Use different stories for different aspects of the move, like enrolling in a new school or taking a long car ride to the new home, to keep the story from being too long. When possible, use real pictures of your family, as well as your names and other personal details. Ask your real estate agent to send you photos from the new home to incorporate. Be truthful and accurate, but always speak in a positive tone. You should also highlight the positive aspects of the move — decorating a new bedroom, having a bigger backyard to play in, or being closer to activities and people they love, for example. Use simple language that is easy for your little one to understand and repeat. Have the child present the story to their family and friends as a way of building confidence around the situation. In addition to the custom solution a social story provides, you can also use existing books, movies, and music to familiarize your child with the moving process from the eyes of another child, family, or even fictional character. Here’s how: Use your child’s favorite storytellers. If there is a series or character your child already loves, you can probably make a connection between your child’s situation and theirs. A simple online search will reveal whether the cast of Sesame Street, The Berenstain Bears, or Mister Rogers’ Neighborhood have ever had to move. (They have!) Introduce moving-specific storylines. There are dozens of book and movies out there written specifically to help children cope with relocating. Check them out from the library or order them online, and then just read, watch, and repeat. In addition to talking to your child, you should also take the time to listen and observe. Most importantly, ask your child how he or she is feeling about the move. Even if your little one can’t put into words what they are feeling, chances are you know them well enough to discern what parts of the moving process are making them most anxious. Also, be on the lookout for new behaviors and different emotional responses at home or school. Every tantrum, outburst, or breakdown is another opportunity to reassure your child that everything will be OK. Take Action In addition to telling and showing your child how a move will affect them, there are some more steps you can take to ease them through the transition. Keep in mind that every child is different, and what calms one little person may trigger another. Use your best judgment and parental instincts to determine which of these ideas may benefit your kid, and don’t be afraid to change tactics mid-stride if your strategy doesn’t seem to be working. During the move, pack your child’s belongings last, and unpack them first. Allow your child to help as much or as little as they feel comfortable. If they are anxious about all of their belongings making it to the new house, ask them to make a checklist of beloved items. Then, let them help you pack and label them. Consider investing in clear, plastic tubs instead of plain cardboard boxes. This way, your child can keep an eye on their stuff. You may even be able to transport a container of their special items in the car with you. Your list of action items should also include creating a space in the new home where your child feels safe and comfortable. For some children, this may mean organizing and decorating their new room to mimic their old one. While the layout and size of the room will likely vary, taking care to position furniture, wall hangings, and toys in the same relative positions can help your little one regain a sense of familiarity in your new home. Other children may see a new room as a chance to choose new decor. Allowing them to choose a paint color or a new bedding set may be just the thing your child needs to get excited about his new space. If your new home comes with a backyard, you may also want to invest some time and energy into creating an outdoor space specifically for your child with ASD before you move in or shortly after. Focus on activities that develop skills and stimulate their senses, like a sandbox, water table, or birdseed bin. It would help if you also designed an area of the space as a haven — somewhere your child can go when he or she is feeling overstimulated. Ultimately, finding a new normal is going to take time. Even after everything is moved and unpacked, leave space for your child to change his or her mind. While you may not be able to repaint their room, you can rearrange it or replace their new comforter with their old, familiar one. Consistency is Key The more prepared your child is for each part of the journey, the more likely their acceptance of it. As you probably already know, that means repeating the narrative you’ve created over and over and over again. During a move, that’s going to be more difficult than usual. You’ll be busy packing, loading, unloading, and unpacking, not to mention completing all of the administrative tasks that come with moving. (Think address changes, projects around the house, and other odds and ends.) Just remember, the time and energy you spend helping your child understand the process will come back to you in the end in a great way. So, start early, repeat often, and — perhaps most importantly — don’t stop reassuring your child until they have adjusted to all of the changes in their lives. It’s gonna take some time for you as well, and that’s ok. Not every move for me has been a positive one, but I kept reassuring myself that no matter how difficult the process was, there was space to make a home at the end. And this home was going to be filled with love, and patience, and understanding. The new home would be a witness to the amazing achievements my son was going to make, and the strength that I would build. It’s all good! Take a deep breath, and take one box at a time. Thanks for being a part of My Autism Tribe, and I’ll see ya next week!

EPISODE 30: MANNERS WITH A SIDE OF AUTISM With guest Robin Hammond of Southern Hospitality Etiquette   INTRO: In the 1950s, manners were taught to all children. Because of the structured ways that manners were taught and the expectation that everyone would learn them, it helped many children who were socially awkward to adapt. I want to read you a quote from our beloved Temple Grandin: “It is acceptable to be eccentric, but being rude, unkind, or not knowing how to interact with others at the basic level of “please,” “thank you,” or “excuse me” is never acceptable. Manners help people exist together and get along with each other. They will open doors that will give you a chance to express yourself, be yourself, and achieve your goals and dreams. I know from experience that this is possible. Just keep learning and trying!”   Today’s guest is Robin Hammond, the owner of Southern Hospitality in Kentucky.  She specializes in teaching children and adults, through etiquette classes, how to become confident, self-assured, and influential leaders in the community. Robin also became an official Autism-Friendly Certified Business. Please join me in a warm welcome.   CONCLUSION: In many of her writings and face-to-face presentations, Temple Grandin repeatedly stresses one thing: autism is not an excuse for bad behavior. In a great book with a forward by Temple, they give tips for teaching manners to children with autism. The top ones are: 1. Model the good manners you are trying to teach your child. 2. Use video modeling and media as tools. Even animated characters can have good manners. 3. Define the manner in a way that is meaningful for the child. Explain to them that they are rules. Some kids don’t care or understand the “why it’s important to others”. And 4. Consider using visuals and nonverbal prompts so the child can learn to use manners independently. All in all, no matter where we call home, the basic social manners of “please,” “thank you,” or excuse me” are a universal language. As Temple says, “Just keep learning and trying.” Thanks so much for being a part of My Autism Tribe, and I’ll see you next week!   ABOUT SOUTHERN HOSPITALITY ETIQUETTE: There are a few things southerners take seriously: college football, anything fried, and manners. As southern children, we are taught early on the value of writing thank-you notes, saying “please” and “thank you”, and understanding the important of proper etiquette in every situation. www.southernhospitalityinky.com

EPISODE 29: Friendly Robot Helps Children with Autism With Dr. Greg Firn, COO, RoboKind   INTRO: Many children and adults on the autism spectrum need help in learning how to act in different types of social situations. They often have the desire to interact with others, but may not know how to engage friends or may be overwhelmed by the idea of new experiences.   Today’s guest is Dr. Greg Firn, the Chief Operating Officer for RoboKind. The focus at RoboKind has been to help children with autism learn critical social and behavioral skills and achieve academic success by way of purpose-built humanoid robots that deliver developmental instruction modules that teach critical functional skills. This comprehensive intervention program is called Robots4Autism. Greg’s deep experience and passion for helping under-served children has been instrumental in helping RoboKind develop the products and strategies that will successfully serve the K-12 education market.   CONCLUSION: All students, regardless of their background or ability, should be given the opportunity to realize their full potential. The future is interactive education, and thanks to our friends at RoboKind, we are on our way to engaging, enhancing, and enriching students with diverse and inclusive education. Thanks so much for being a part of My Autism Tribe. Keep up the great work, and I’ll see you next week!   ABOUT: Robots4Autism is a comprehensive intervention program that uses purpose-built humanoid robots to deliver developmental instruction modules that teach critical functional skills. The curriculum uses proven best practices for teaching social and behavioral skills. The robot, Milo, creates a high-level of engagement between the student and the robot. Unlimited repetition of lessons that are 100% consistent. Data provided to document and direct student progress.   Positive Student Outcomes – Learners with ASD using the Robots4Autism curriculum show observable increases in engagement: eye contact, body language and friendliness. Working with Milo, learners act more appropriately in social situations, self-motivate, self-regulate, and generalize in the population.   Benefits – Behavior – Rapid decreases in disruptions and meltdowns; increases in ability to concentrate. Due to Calm Down modules and acceptance of Milo as a friend. Emotional Understanding – Increased understanding of human emotions and their meanings creates a willingness to look at humans directly in their face. Creates confidence and willingness to engage in social situations. Vocabulary – Dramatic increases in verbalization and attempts to use language and expand vocabulary. Home – Changes in behavior and interaction at home and a recognition by parents that things have improved. School – Ability to function in school translates into rapid academic progress. These life-changing benefits often occur after only 1-4 months of interaction with Milo.    FOR MORE INFORMATION: www.robokind.com   PRESS MENTIONS: https://www.wwltv.com/article/news/education/milo-robot-is-changing-the-way-students-with-autism-learn/289-549737eb-aac2-4d55-ad7f-ebab34d53089   https://thejournal.com/articles/2019/04/04/friendly-robot-helps-autistic-kids-practice-social-skills.aspx    

EPISODE 28: AUTISM STORIES OF PROGRESSION Featuring Joyce Peet, OT   INTRODUCTION: Sometimes it’s easy to get mentally stuck in a place of despair when caring for a loved one on the autism spectrum. All of the therapy appointments, advocating and temporary setbacks can be overwhelming and discouraging. I always think it’s important, however, to focus on the stories of success. The stories that give hope and encouragement. Everyone needs this, right?   Today’s guest has many years of experience in providing care for those on the spectrum, and she has many stories that I believe will inspire us all to keep going. Joyce Peet is an occupational therapist, and she has been providing therapy for my son for the past two years. I’ve seen the progress that my son has made, and I’ve often relied on her to provide me direction on the best ways to set goals for social interaction, behavior and classroom performance for Alex. Let’s all give a warm welcome.   CONCLUSION: Occupational therapists are experts in the social, emotional, and physiological effects of illness. This knowledge helps them promote skills for independent living in people with autism and other developmental disorders. They are often a very critical piece in a developmental therapy program. But aside from all of the text book knowledge and individualized therapy plans, they are a witness to the incredible lives of those on the spectrum. From beginning to end, they see it all, and are inspired to make a difference in the lives of others. Thanks so much for being a part of My Autism Tribe, and I’ll see you next week!

EPISODE 27: LIVING A HAPPY AND MEANINGFUL LIFE WITH AUTISM With Dawnita Shively    INTRODUCTION: Sometimes it’s easy to just focus on the word “autism”, but let’s have our conversation today focus on passions and uniqueness. Let’s talk about setting goals for the individual and the expectation of your child having a happy, fulfilling and meaningful life.   Today’s guest is Dawnita Shively, a passionate BCBA and Clinical Director for Autism and Behavior Concepts– an organization that provides clinic and home-based services to children and adults with autism. She has a vast amount of knowledge and experience from her years in working closely with autism families.   Early detection & Intervention: This is your child. If you feel that your child is not hitting milestones be persistent. Find someone who will take your concerns seriously and evaluate. Allow yourself to grieve and start setting goals and expectations. Do not let a diagnosis tell you who your child will become. Like all of us, they will have their own goals and passions. Learn to accept those passions and help them by allowing access to interventions that teach lifelong skills. Research the treatment options and decide what is best for your child.   School age: Culturally children are expected to go to school. That is what parents strive for and if this is right for your child, push for it. Remember that public education requires that children receive “free and appropriate” not “free and exactly what you want.” Ask yourself what behavior impedes on my child succeeding in school. Consult professionals to help you set reasonable goals and push. Find a placement that understands that your child is an individual and use your child’s passions to help them succeed in life. Know your rights and let the school know you are aware of what your child deserves and do not give up. Adolescents: Teenage years are difficult on all of us. Remember this is not unique to autism, try to relate, do not make excuses, and continue to set goals. This is the time to start asking, observing and getting to know what motivates your child. How can you help them grow in areas they enjoy so that they can have a happy and productive life? Hobbies Job Skills Independence: We are happy when we can do things for ourselves. Start thinking and talking about what lifestyle your child will have as an adult. Reasses goals and barriers to that lifestyle.   Adulthood: Remember to ask yourself what makes a productive and happy adult. Focus on these areas as goals. Do not focus on Autism, focus on the happy and productive life. Who in your life can help you support your child? Reality is you will not be around forever. You want your child to have a community, just like you have, to support them in their passion and goals. Remember that all adults make choices that lead to success and happiness. Working with your adult child and knowing their goals will help you. College Job placement Living with you   CONCLUSION: Always remember that a parent is a child’s best advocate. Parents are ultimately responsible for making sure their child can have a happy and healthy life. By having these expectations, they can set goals to remove barriers that may prevent this from happening. If you are a parent or caregiver to a loved one on the autism spectrum, set goals for a life that is meaningful to your child and society, and know that autism does not define your child. Let your child define themselves, and support them in having the best life they can possibly have. Thanks for joining me today, and for being a part of My Autism Tribe. I’ll see you next week!

EPISODE 26: AUTISM FAMILIES: HOW TO THRIVE IN CHAOS   INTRODUCTION: How often do you find yourself saying, “My life is just chaotic. Will this ever end?” Today’s guest is a father and autism advocate that has worked tirelessly at not only creating a thriving home environment for his family, but many other families as well.   Kyle Jetsel, and his wife Shelly, are the proud parents of six children, two of them being on the autism spectrum. He’s going to be sharing his story on how his family is actually thriving amidst the chaos. They are coaches, confidants, and they truly understand what it’s like to be on the autism roller coaster. Over the past decade, they’ve developed strategies and techniques that have helped their family lower stress, and have been able to get back the family life they wanted. A life filled with joy, happiness and fun. It hasn’t been easy, but they weren’t afraid to work at it. Please welcome this inspiring guest, Kyle Jetsel.   CONCLUSION: Raising children on the autism spectrum can be really hard. The chaos can sometimes feel overwhelming. Perhaps there are times you feel that your home is like a combat zone. But it doesn’t have to be that way. Now is the time to really roll up your sleeves, dig deep, and help your family get a whole new, better life that everyone deserves. We are here for you, for support, love and encouragement. Thanks for being a part of My Autism Tribe, and thanks for listening to the inspirational message of Kyle Jetsel. I’ll see you next week!    TO FOLLOW KYLE JETSEL:   WEBSITE: https://thriveinchaos.net/   FACEBOOK: https://www.facebook.com/AutismLaughterTherapy/   YOUTUBE: https://www.youtube.com/channel/UCnzT4528uGk22RiAFAEKtjg