Podcasts about klinefelter syndrome

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Best podcasts about klinefelter syndrome

Latest podcast episodes about klinefelter syndrome

The Just Checking In Podcast
JCIP #276 - James Roffey - Part 3

The Just Checking In Podcast

Play Episode Listen Later Feb 21, 2025 95:36


In episode 276 of The Just Checking In Podcast we checked back in with James Roffey. James is a personal trainer and semi-professional footballer. He was previously the business owner of his personal training brand ‘The Mental Health PT' but due to personal and business reasons, has rebranded and relaunched it as ‘Ultimate Body and Mind'. James first came on the pod in JCIP #183 where he discussed his journey into personal training and his struggle and recovery from a long-term eating disorder, which was triggered by three major life events. Since then, a massive amount has happened in James's life, positively and negatively. For the former, he signed for non-league club Sheffield FC, only for the team to sign a professional goalkeeper the day before the transfer window shut and make him the number two goalkeeper at the last minute. As a 36-year-old, James needed to play minutes and had to leave the club and join another team as a result. For the latter, he has separated from his wife, which became messy and caused James severe mental health difficulties. During this separation, James discovered he was infertile because of a genetic condition he had called Klinefelter syndrome which, according to the NHS website, is characterised by boys being born with an extra X chromosome, so for James he has XXY, as opposed to XY for other men without the condition. It's important to state that the X chromosome is not a "female" chromosome and is present in everyone. The presence of a Y chromosome denotes male sex. Symptoms of Klinefelter Syndrome in childhood can include: shyness and low self-confidence, problems with reading, writing, spelling and paying attention, mild dyslexia or dyspraxia, low energy levels, and difficulty socialising or expressing feelings. In teenagers, it is characterised by growing taller than expected. Finally in adulthood, as James tragically discovered, it is characterised by infertility as well as low sex drive, smaller testes and erection problems, which James bravely admits on the podcast but originally attributed it to his eating disorder. Kleinefelter Syndrome is also recognised as a Difference in Sexual Development (DSD). James also began suffering from cluster migraines because of the stress of his marriage breaking down, as well as a myriad of other events happening which we can't discuss on this podcast. James's uncle also tragically took his own life in 2024 after trying to take his own life previous to that three times. James says his uncle was let down by the system; the healthcare system for not providing adequate care, and the family court system as his uncle separated from his wife and claims he was parentally alienated from his step-children by his ex-wife. In Part 3, we discuss James's business rebrand and why he did it, a deep dive into his marriage breakdown, his infertility diagnosis, drama in his football career and how he took himself from rock bottom to where he is now. Infertility is one of the most stigmatised experiences one can feel as a man for obvious reasons and we are very proud of James for the bravery he has shown on this podcast to discuss it so openly and courageously for all of the men who live with Klinefelter Syndrome in the UK, which is currently as high as 1 in 600 in this country. As always, #itsokaytovent You can find out more about Ultimate Body & Mind here: http://www.ultimatebodyandmind.com You can follow James on social media below: Instagram: https://www.instagram.com/theultimatebodyandmind/ You can listen to Part 1 and Part 2 of James' journey below: Part 1: https://soundcloud.com/venthelpuk/jcip-183-james-roffey-part-1 Part 2: https://soundcloud.com/venthelpuk/jcip-183-james-roffey-part-2 Support Us: Patreon: www.patreon.com/venthelpuk GoFundMe: www.gofundme.com/f/help-vent-supp…ir-mental-health Merchandise: www.redbubble.com/people/VentUK/shop Music: @patawawa - Strange: www.youtube.com/watch?v=d70wfeJSEvk

Taco Bout Fertility Tuesdays
Embryo Math: Why Aneuploidy Doesn't Mean a Chromosomal Disorder

Taco Bout Fertility Tuesdays

Play Episode Listen Later Feb 5, 2025 13:56 Transcription Available


Send us a textMany patients panic when their PGT results show numerous abnormal embryos, fearing that this means they have a high chance of having a baby with a chromosomal disorder. But is that really true? In this episode of Taco Bout Fertility Tuesday, Dr. Mark Amols breaks down the math behind aneuploid embryos, explaining why most won't lead to a live birth and how natural pregnancy risks remain low. Learn how implantation rates, miscarriage risks, and real-world statistics shape the actual chances of having a child with Down syndrome or other chromosomal conditions. If you've ever wondered what your PGT results really mean, this episode is for you!Thanks for tuning in to another episode of 'Taco Bout Fertility Tuesday' with Dr. Mark Amols. If you found this episode insightful, please share it with friends and family who might benefit from our discussion. Remember, your feedback is invaluable to us – leave us a review on Apple Podcasts, Spotify, or your preferred listening platform. Stay connected with us for updates and fertility tips – follow us on Facebook. For more resources and information, visit our website at www.NewDirectionFertility.com. Have a question or a topic you'd like us to cover? We'd love to hear from you! Reach out to us at TBFT@NewDirectionFertility.com. Join us next Tuesday for more discussions on fertility, where we blend medical expertise with a touch of humor to make complex topics accessible and engaging. Until then, keep the conversation going and remember: understanding your fertility is a journey we're on together.

Saturday Magazine
Saturday 26th, October, 2024: Intersex Awareness Week: Paul Byrne-Moroney

Saturday Magazine

Play Episode Listen Later Oct 27, 2024 16:50


Macca and Sally are joined live on air by Paul Byrne-Moroney. A member of the Intersex community here in Victoria is Paul Byrne-Moroney. Paul was diagnosed with Klinefelter Syndrome at... LEARN MORE The post Saturday 26th, October, 2024: Intersex Awareness Week: Paul Byrne-Moroney appeared first on Saturday Magazine.

Men's Health Podcast
Understanding Klinefelter Syndrome: The Chromosome Anomaly

Men's Health Podcast

Play Episode Listen Later Apr 26, 2024 39:25


We're joined by an advanced clinical practitioner, lecturer, and Klinefelter patient, Chris Breen, to discuss all things Klinefelter Syndrome. Learn more about the condition as we raise awareness and break down the misconceptions of this chromosomal condition.

The Embryo Adoption Podcast
Episode 10: Klinefelter Syndrome: Not the Final Word

The Embryo Adoption Podcast

Play Episode Listen Later Apr 25, 2024 28:00


Brittany & John once thought Klinefelter syndrome had erased any hope of experiencing pregnancy. Now, they're in awe of God's goodness as Brittany is about to deliver their embryo adoption baby. In this episode of The Embryo Adoption Podcast, they share their journey, which they call “miraculous & remarkable.” Share, rate, review, and subscribe to The Embryo Adoption Podcast wherever you listen to podcasts.

Becoming Your Best Version
A Conversation with Ginnie Cover, Author/Advocate for Those with Disabilities and Their Families

Becoming Your Best Version

Play Episode Listen Later Mar 22, 2024 31:34


Virginia (Ginnie) Isaacs Cover has worked throughout her career with children and adults with complex medical conditions and developmental disabilities. She is an advocate for those with disabilities and their families and published a widely read guidebook for those affected by X and Y chromosome variations. She explores the impact of a prenatal diagnosis on a young family in her new book, Supplemental Needs: A Novel. Ginnie became a “special needs parent” when her younger son was diagnosed prenatally with 47,XXY, also known as Klinefelter syndrome. Although sex chromosome aneuploidy (SCA) is more common than Down syndrome at an estimated 1 in 400 live births, it is recognized and properly diagnosed in fewer than 25 percent of the affected population. She became a passionate advocate for families affected by disabilities, including the X and Y chromosome variations, and provides educational programs for families and professionals who work with this population. In 2012, she published Living with Klinefelter Syndrome, Trisomy X, and 47,XYY. The book provides clear explanations of the genetics involved, as well as diagnosis, disclosure, development from infancy through potential health and fertility issues, and educational and psycho-social considerations. This guidebook has helped thousands of people grow their understanding of this condition. She believes it is equally important for literature to cover the emotional impact that prenatal testing has on parents while also improving early identification of X and Y chromosome conditions. She felt this could only be done through the sharing of stories. Her goal in writing the novel was to explore the impact of a prenatal genetic diagnosis on a young family who decides to continue a pregnancy despite a medical geneticist's advice. Supplemental Needs: A Novel portrays a young family whose lives change on learning through prenatal genetic diagnosis that their baby will have Klinefelter syndrome, most likely causing some degree of disability, as well as infertility and possible sexuality issues. In this episode, Ginnie speaks about prenatal counseling; termination of pregnancy when chromosomal variations exist; societal acceptance of KS, the neurodiverse, LGBTQ individuals and how it has changed over time; and attitudes in Judaism toward LGBTQ individuals and why these are so different across the branches (Reform, Conservative, Orthodox) Supplemental Needs incorporates accurate information and creates needed conversation around what we each believe about continuing a pregnancy where there may be some level of disability, or when there may be a slightly elevated rate of homosexuality, or of gender dysphoria. Readers gain greater awareness and understanding about the parental experience of when a child is not following a typical developmental trajectory, familiarizing the public with sex chromosome aneuploidy in a non-sensational manner. "I want readers to experience the sadness, fear, and hopefulness felt by [the characters] as they wrestle with the choices that must be made, and the impact they have on their son, and their family," Ginnie says. "Through the characters and events, readers will also confront the research suggesting that sexual orientation and identity may be heavily influenced by DNA." Ginnie lives in the Washington, D.C., metro area and has two adult sons and three grandchildren. She volunteers through her synagogue for the Interfaith Refugee Support group. She also is a board member for L'Arche Long Island, a non-profit agency providing housing for adults with developmental disabilities, vocational and life skills training. Ginnie holds a Master of Social Work degree from the University of Michigan. Learn more at VirginiaCover.com https://www.facebook.com/virginia.cover --- Support this podcast: https://podcasters.spotify.com/pod/show/maria-leonard-olsen/support

Livingwithxxy
#113 XXY (Klinefelter Syndrome) with Ryan Bregante

Livingwithxxy

Play Episode Listen Later Mar 19, 2024 39:22


Ryan is the president and founder of California-based non-profit Living with XXY. Ryan is a 37-year-old with Klinefelter syndrome or 47, XXY. Klinefelter syndrome results from an extra X chromosome, affecting roughly 1 in 500 males. Ryan's parents learned about his XXY diagnosis during his mother's pregnancy. His experiences navigating XXY and those of the over 600 families he's met help guide and inspire Ryan's work today. While Ryan's background includes work as a fine dining chef and action sports photographer, he currently spends most of his time advocating for his community through his non-profit. Living with XXY was officially established in 2019 and focuses on creating a community, spreading awareness, and sharing positive traits for those with an XXY diagnosis. Living with XXY is growing daily, reaching over 40 countries. Ryan is traveling around the US, meeting with clinics, professors/students, other professionals, and families to share the work of Living with XXY and create opportunities for connection for those with XXY.

Zero Shoulds Given
Ep #17 Gareth Landy's Story – Male Infertility

Zero Shoulds Given

Play Episode Listen Later Feb 12, 2024 62:43


In today's episode of the Zero Shoulds Given podcast we are joined by Gareth Landy as he shares his own experience on a topic that is often shrouded in stigma and silence—male infertility.    Throughout the episode, Gareth shares inspiring stories of resilience and hope, highlighting the importance of open conversations and support networks for those navigating the journey of male infertility.  We also explore Gareth's diagnoses of Klinefelter Syndrome, a genetic condition that often goes unnoticed and undiscussed and how the diagnosis has impacted his life. Whether you or someone you know has been personally affected or you're simply curious to learn more, this episode aims to break down barriers and foster understanding around a topic that deserves more attention - male infertility. Thank you to Gareth for being so open and honest in sharing your story.  You are an amazing advocate for generating awareness of Klinefelter Syndrome and male infertility.  We wish you and your family all the best for the future. If you wish to access more information on self-development, wellness, and mental health here are some useful links:  https://prettyfly4xxy.com/  https://livingwithxxy.org/  https://nisig.com/  https://dcnetwork.org/  https://www.ivfbabble.com/  https://www.instagram.com/zeroshouldsgiven/  https://www.instagram.com/annalehanecoaching/  https://www.instagram.com/yvonnemurray.ie/  https://turn2me.ie/   https://www.aware.ie/  Disclaimer: Please note, this podcast is not intended to replace therapy, it is for entertainment and informational purposes only, if you need support with your mental health, please contact a qualified professional.  A list of qualified professionals in Ireland can be found via https://iacp.ie/page/therapists?co=6&cat=11     #podcastcommunity #newpodcast #podcastireland #wellnesspodcast #wellbeingpodcast #mentalhealthpodcast #irishpodcasters #personaldevelopment #mentalhealth #selfgrowth #thoughts #thoughtprovoking #mindset #menshealth #maleinfertility #infertility #klinefeltersyndrome #maleinfertilityawareness

Men, Sex & Pleasure with Cam Fraser
Quicky #25: Understanding the Space Between Male & Female (with Toby Whittington)

Men, Sex & Pleasure with Cam Fraser

Play Episode Listen Later May 23, 2023 9:43


Quicky #25 is from Season 2, Episode 12: #28 Intersex: Understanding the Space Between Male & Female (with Toby Whittington) Today on the podcast, I chat with Toby Whittington. Toby, who uses they/them/he/him pronouns, was diagnosed with Klinefelter Syndrome (47 XXY karyotype) in 2010. Among other issues, Toby found out that they were not able to father children and that they don't produce enough of their own testosterone. He started on Testosterone Replacement Therapy which set him on a path of going through adult puberty, a physical and mental transition which lasted over 8 years. Toby now openly acknowledges that they are an Intersex person and in 2020, when they came out as gender non-binary, this was the first time they felt that their biological sex and their gender identity were aligned. Toby is passionate about educating people around these issues, what it means to be Intersex and the confusion with regards to differences between biological sex, gender identity and sexual orientation. He has and promotes a very open and positive attitude towards sex, sexuality and sexual expression, so long as it is safe and that participation is between consenting adults. Toby and I talk about their experience being Intersex and how it affected their ideas of masculinity as well as what it means to “be a man.” --- Send in a voice message: https://podcasters.spotify.com/pod/show/cam-fraser/message

Middee | Pregnancy, Birth & Postpartum Education
Part One: A heartbreaking decision with my sister Emma Ransom - High risk NIPT test, Klinefelter syndrome & surgical termination

Middee | Pregnancy, Birth & Postpartum Education

Play Episode Listen Later May 12, 2023 82:18


In today's episode I sit down with my older sister Emma to bring to you part one of her three part motherhood Journey. Part one of Emma's motherhood story begins with an extremely real, raw & honest conversation about loss including the many kind of loss women experience but in particular her experience with a high risk genetic NIPT test for Klinefelter Syndrome. Klinefelter syndrome is a genetic condition that results when a boy is born with an extra copy of the X chromosome. Klinefelter syndrome is a genetic condition affecting males. Klinefelter syndrome may adversely affect testicular growth, resulting in smaller than normal testicles, which can lead to lower production of testosterone. The syndrome may also cause reduced muscle mass, reduced body and facial hair, and enlarged breast tissue. Most men with Klinefelter syndrome produce little or no sperm. Emma talks us through the rollercoaster of emotions she experienced during this pregnancy including the highs of falling pregnant for the first time & the lows of a positive result for klinefelter syndrome and further genetic testing such as an amniocentesis. Emma shares her battles with making the heartbreaking decision to discontinue the pregnancy via a surgical termination at 16 weeks and highlights some of the truths behind termination which is often not spoken about. I am so incredibly proud of Emma for coming on and sharing her story as it has taken her some time to feel comfortable to put herself out there. Both Emma and I hope that this conversations opens up a discussion about other forms of loss and some of the struggles women face who may receive a high risk genetic screen for their baby. as highlighted within this episode if you are someone who needs to reach out both Emma & myself are here. Another great resource is SANDS. Next week we will bring to you part two of her motherhood story including her labour + birth story with my nephew baby Cohen. Today's episode is brought to you by Babybee. Australia's favourite multi-award winning prams. As a parent choosing what pram is best for your family can be challenging, confusing & exciting all at once. Thankfully babybee have taken this into consideration to design the very best baby products on the market that make #parentlife better. Less stressful, more stylish, and more fun. Carefully crafting their products in Australia their products are based on real parents experiences, so you can be sure that their prams are both safe & of course practical. With an adjustable handlebar to suit taller or shorter parents, slimline frame for effortless maneuverability and a basket for all your baby goodies, using a pram has never been easier.  So head to babybee now at www. babybeeonline.com to check out their incredible products.  Check out our mothers day giveaway here

OldGuyTalksToMe
156. ARE MEN LESS MANLY TODAY, with Dr. Scott Howell Part 2 of 2

OldGuyTalksToMe

Play Episode Listen Later Dec 28, 2022 26:17


This week we are continuing our discussion with Dr. Scott Howell, a certified strength and conditioning specialist with Ph.D. in Health Science from Trident University.    In this part of the interview, we talked about male infertility, how men maintain fertility and why they need to check sperm quality at a young age. If you haven't listened to the first part yet, then listen to it on all major streaming platforms.    Go to www.thestandard.academy/magazine to become one of the first to get my digital magazine for free that'll help you create a kick-ass life.   Scott Howell, Ph.D., CSCS, ABHRT-C is the Clinical Research and Education Director of Optimize U and Professor of Health Science at Optimize U Health Sciences and Colorado State University. Dr. Howell holds a Ph.D. in Health Science from Trident University, a Master of Science in Sport and Health Science from American Military University, a Bachelor of Science in Sport and Health Science from American Military University, and a Mechanical Engineering degree from Forsyth Technical College as well as two additional doctorates. He is a certified strength and conditioning specialist (NSCA-CSCS), periodization strength and conditioning expert (PSC-E), an exercise scientist, and epidemiologist with research interests in periodization training for sports, the long-term harm of performance-enhancing drug use, and endocrine disrupting chemicals exposure.  A bit about me (Dr. Orest Komarnyckyj) Dr. Orest Komarnyckyj enjoyed a prestigious career as a periodontal regenerative surgeon moving to a new passion in June 2018. He retired after a 33-year career to pursue new passions. At 70 Dr. Orest has taken on a new role as an Interviewer, Podcaster, and government-certified Old Guy. He streams from his new home in Las Vegas, NV. He lives with his wife of 30 years, Oksana. His status as an empty-nester with two college-employed children has left him with time and energy to share decades of successes, failures, and wisdom.   You can connect with Scott here: www.optimizeunow.com drhowell@optimizeunow.com   Timestamps Part 2   00:00 - Precap 00:45 - Intro starts 01:54 - Intro ends 03:00 - Male infertility  04:00 - How do men maintain fertility 05:51 - The best bet for a young man to have sperm checked 06:37 - Other treatments apart from testosterone check 08:51 - How do men get erectile dysfunction  10:35 - Genetically set ratio in men between their testosterone and estrogen level 12:30 - Klinefelter Syndrome  14:22 - Does Testosterone increase your blood pressure? 15:35 - Commercial Starts 16:09 - Commercial Ends 16:58 - Should we trust secondary data? 19:07 - Blackbox warning on Testosterone 19:33 - Why don't physicians prescribe testosterone? 20:20 - What is OptimizeU? 23:56 - Closing thoughts 25:25 - Outro

BJUI Knowledge: e-learning in urology
Azoospermia in Klinefelter syndrome

BJUI Knowledge: e-learning in urology

Play Episode Listen Later Dec 13, 2022 24:32


Author Yap Tet discusses managing fertility issues associated with Klinefelter syndrome (47,XXY syndrome) with associate editor C J Shukla.

The Peptide Podcast
Testosterone

The Peptide Podcast

Play Episode Listen Later Sep 22, 2022 4:00


Testosterone is a sex hormone made predominantly in the testicles that helps men develop sexually and physically. Hormones are chemicals that carry messages in your bloodstream to the rest of your body. They tell your body what to do and when to do it.   But it's important to know that everyone has testosterone. It plays a major role in regulating a number of things in women's bodies too, but we're going to focus on testosterone in the context of the male body. What does testosterone do in your body? Testosterone plays a key role in regulating cholesterol, blood sugar, and fat levels. It also helps keep our bones strong, build muscle, boosts sex drive, and promotes body and facial hair growth. It can even affect sperm count and mood. How does your body make testosterone? Messages are sent from your brain to your pituitary gland. The pituitary gland sends a message to the testes to make testosterone. A "feedback loop" closely regulates the amount of testosterone in the blood. When testosterone levels rise too high, the brain sends a message to the pituitary gland to lower testosterone production. What happens to your testosterone levels over time? As men age, their testosterone levels naturally decrease. Peak testosterone levels happen during puberty. Typically men over 30 begin to experience a gradual decrease in testosterone levels where testosterone production decreases about 1% to 2% each year. In addition to age, lifestyle, environmental factors, and overall health contribute to the natural decline in testosterone levels. Poor health or underlying medical conditions may contribute to testosterone levels decreasing. This includes things like: Injury or infection of the testicles Alcoholism Obesity Type 2 diabetes Certain genetic and autoimmune conditions (e.g., Klinefelter Syndrome, lupus, rheumatoid arthritis) Tumors of the pituitary gland or hypothalamus Specific cancer treatments (e.g., chemotherapy, radiation) Certain medications (e.g., opioids, prednisone) Plastic-leaching PCBs (polychlorinated biphenyls)- resemble estrogen (found in certain fish, dairy products, and animal fat) Thanks again for listening! You can find more information at pepties.com. That's peptides without the D. Where we are tying all the peptide information together.  Thanks again for listening to The Peptide Podcast. We love having you as part of our community. If you love this podcast, please share it with your friends and family on social media. Have a happy, healthy week! Pro Tips We're huge advocates of using daily collagen peptide supplements in your routine to help with skin, nail, bone, and joint health. But what do you know about peptides for health and wellness? Giving yourself a peptide injection can be scary or confusing. But we've got you covered. Check out 6 tips to make peptide injections easier. And, make sure you have the supplies you'll need. This may include syringes, needles, alcohol pads, and a sharps container.

The Medbullets Step 2 & 3 Podcast
Pediatrics | Klinefelter Syndrome

The Medbullets Step 2 & 3 Podcast

Play Episode Listen Later Sep 12, 2022 8:09


In this episode, we review the high-yield topic of Klinefelter Syndrome from the Pediatrics section. Follow Medbullets on social media: Facebook: www.facebook.com/medbullets Instagram: www.instagram.com/medbulletsofficial Twitter: www.twitter.com/medbullets

Pathopharmacology for Nurses
Common Genetic Problems, Part II, S1M1E9

Pathopharmacology for Nurses

Play Episode Listen Later Aug 16, 2022 17:25


Common genetic problems including Cystic Fibrosis, lysosomal storage disease, Wilson Disease, G6PD deficiency, Klinefelter Syndrome, Turner Syndrome, Fragile X Syndrome, Down Syndrome, and Prader-Willi Syndrome.

Livingwithxxy
62 | Life with Klinefelter syndrome: Luke Breard

Livingwithxxy

Play Episode Listen Later Aug 2, 2022 55:44


Luke Breard is a 29-year-old man living in Baton Rouge, Louisiana. When he and his wife could not conceive, they discovered he had an unknown diagnosis. Luke has been living his entire life with Klinefelter syndrome. This is the story of Luke's XXY diagnosis and how he became an adoptive father to two incredible boys. The Living With XXY Website

Livingwithxxy
61 | Life with Klinefelter syndrome: Rodrigo Marron

Livingwithxxy

Play Episode Listen Later Jul 25, 2022 71:52 Very Popular


After one and a half years of trying for a baby, Rodrigo Marron was diagnosed with Klinefelter syndrome/47 XXY in February of 2022 at 32 years old. Feeling alone and isolated with a diagnosis no one had ever heard about, his wife spent many hours researching to find something to give them a glimmer of hope. Rodrigo was born in Mexico City and moved to Texas as a young child. He talks about his life growing up and some of the challenges of high school, poor grades, and awkward gym class. Having his high school diploma, he went to college to become an architect. During his college years, he learned self-confidence, and learned he was a visual learner. Establishing a new passion for school, he became an above-average student and thrived in the visual learning environment. After college, he worked multiple jobs before moving to San Fransisco, where he met his future wife. Rodrigo shares his story in hopes others will share theirs to help normalize XXY. https://livingwithxxy.org/

Healthed Australia
Androgen deficiency in younger males

Healthed Australia

Play Episode Listen Later Jun 28, 2022 34:39


A high index of suspicion helps when looking out for androgen deficiency in younger males Half of all patients with Klinefelter Syndrome remain undiagnosed Male infertility is the more common reason for presentation Host: Dr David Lim | Total time: 34 mins Guest: Prof Robert MacLachlan, Endocrinologist; Medical Director, Healthy Male; Director of Andrology Services, Hudson Institute of Medical Research Consultant Andrologist, Monash IVF Group Register for our fortnightly FREE WEBCASTS Every second Tuesday | 7:00pm-9:00pm AEST Click here to register for the next one See omnystudio.com/listener for privacy information.

Livingwithxxy
60 | A father's journey, raising a son with Klinefelter syndrome: Tyler Deur

Livingwithxxy

Play Episode Listen Later Jun 16, 2022 56:23 Very Popular


Tyler Deur is the father of four-month-old Jax who was diagnosed with Klinefelter syndrome prenatally. Tyler and his wife decided to do NIPT testing to find out the sex of their baby for a gender reveal party. A doctor's phone call changed everything and a new journey started to form. Jax is their first child and the love of their life. Tyler talks about their entire journey and how they have embraced their son's XXY diagnosis. Very rarely do we get to hear a father's perspective and this is one you do not want to miss.

Jock Doc Podcast
157. Klinefelter Syndrome/Bruce & Dick (feat. Ezra Parter & Frankie Griffin)

Jock Doc Podcast

Play Episode Listen Later Jun 13, 2022 68:06


Listen as Dr. London Smith (.com) and his producer Cameron discuss Klinefelter Syndrome with Bruce & Dick (feat. Ezra Parter & Frankie Griffin). Not so boring! https://www.patreon.com/join/jockdocpodcast Hosts: London Smith, Cameron Clark. Guests: Ezra Parter Frankie Griffin. Produced by: Dylan Walker Created by: London Smith

Livingwithxxy
58 | Life with Klinefelter syndrome: Seamus Denison

Livingwithxxy

Play Episode Listen Later Apr 13, 2022 38:49


Born in Sydney, Australia Seamus Denison recognized he had a pretty good childhood. He struggled in some subjects in school, particularly math and reading so attended a reading program. He was an athletic child who played sports and made friends fairly easily. Seamus had bouts of erectile dysfunction (ED) at a young age, something that was not easy to deal with. In his late twenties, he started to notice he was extremely tired. Finally, on the day before his 34th birthday in 2020, he received what he referred to as a “special birthday gift”. That day he had his first appointment with his new endocrinologist, who changed his life. Where the first endocrinologist had led him into “a dark hole” this new doctor “closed a chapter for him”.

Livingwithxxy
57 | XXY Mom Squad: Sarah Winner-Wendt

Livingwithxxy

Play Episode Listen Later Apr 8, 2022 35:01 Very Popular


Sarah Winner is a mother whose son was diagnosed with Klinefelter Syndrome while she was pregnant. A yoga instructor, Sarah lives with her husband, 12-year-old daughter Rylan, and Julian in Naples, Florida. To help raise awareness about 47 XXY and prenatal diagnosis, she is sharing her family's story to bring more awareness to XXY. Her written story can be found here.

Livingwithxxy
55 | Life with Klinefelter syndrome: Dylan Mathis

Livingwithxxy

Play Episode Listen Later Mar 7, 2022 59:47


Dylan Mathis is a 26-year-old man living in Chicago, Illinois. Dylan found out he had Klinefelter syndrome in high school around 16-17 years old. After graduating from high school, he went to college with a unique education program and excelled with an art major. After dating the love of his life, he recently got married to his wonderful wife and works as a cable installer. Dylan talks about his struggles throughout his life and overcoming the challenges, gaining confidence along the way.

Livingwithxxy
54 | A father's journey, raising a son with Klinefelter syndrome: Greg Coffin

Livingwithxxy

Play Episode Listen Later Mar 1, 2022 37:05


Greg is the father of Koa who is an adventurous 2-year-old who loves to skateboard, mountain bike, and be active in nature. Greg talks about his experiences with raising a son who was diagnosed with Klinefelter syndrome and focusing on the things his son can do. Greg's story is inspirational and paves the way for other fathers to reach out and tell their own stories about raising a son with Klinefelter syndrome.

Livingwithxxy
53 | Life with Klinefelter syndrome: Tyler Indermill

Livingwithxxy

Play Episode Listen Later Feb 24, 2022 55:13


Tyler is a 34-year-old man who is currently living in San Diego, CA with his wife. Tyler was diagnosed with Klinefelter syndrome at the age of 33 after 1 year of trying to have kids with his wife. After Tyler's diagnosis, he tried Micro-Tese and was unsuccessful. Tyler talks about how he found Living With XXY's podcast and how the stories of others helped him with acceptance and moving forward.

The Cabral Concept
2116: Sebaceous Cysts, Dysfunctional Gallbladder, Gluten-free Grains, Eye Pterygium, Carbs & Weight Gain, Klinefelter Syndrome (HouseCall)

The Cabral Concept

Play Episode Listen Later Nov 21, 2021 25:12


Thank you for joining us for our 2nd Cabral HouseCall of the weekend! I'm looking forward to sharing with you some of our community's questions that have come in over the past few weeks… Let's get started!    Jody: Hi Dr. Cabral. I was hoping you could give me some information on sebaceous cysts...what are they, where do they come from and what happens when they get infected? I have searched your podcasts and don't believe I have heard you mention them before. I had one on my shoulder apparently for a while, where it just seemed to be a small bump. It became infected and painful and my doctor put me on antibiotics. After a few weeks to a month it was much better and has actually disappeared. I have several now on my labia where they too became very irritated and painful. My OBGYN prescribed me a cream that did not make it any better so eventually put me on antibiotics again. That helped a little but not like it did with the outcome of the one on my shoulder. I have a cluster of them on both sides of my labia and they still sometimes become irritated. My OBGYN did say I could have them cut out but that seems very painful due to the fact where they are located. I would love to hear any thoughts or advise you have regarding this. Thanks so much for your time and for all you do. I really enjoy listening to your podcasts every day. Angie: Hi Dr. Cabral. I recently overcame HPylori and am working on my digestion. I am doing your parasite protocol. started taking your DNS powder and will do the CBO protocol soon. When I took the DNS powder it resulted in pain under my right rib cage, so I lowered my dosage to half a scoop, which helped. My questions is, how do I heal a dysfunctional gallbladder so I don't have to get it removed? I also have low stomach acid and gastritis, what are your recommendations to heal those? Kirsten: I am on day 1 of the 7 day detox. Regarding days 3-7 vegan/paleo meals what are the thoughts regarding including gluten free grains like quinoa, rice and oats. Also what about raw nuts - walnuts, almonds, cashews? Lastly what about seeds? I have been going through everything and thought it said no grains and the program itself is nut free, I am presuming because the allergen potential, but i can't find specific discussion on these. Thank you Nic: Hi Dr. Cabral, I've developed a pterigium on my eye and I wonder if there is anything I can do to make it go away or stop growing? I'm terrified of the thought of surgery down the road. Also, why would I have developed it in the first place? Thank you! Nic Stacey: Hi, I have binge listened to your episodes this week. Carb cycling is a lot of interest to me. I tend to work out daily, so tend to keeps my carbs at the higher end. Is that impacting my weight loss? I'd love to know can you be doing too much. I walk 10,000 steps daily and do a 40-50 min workout each day. Thanks Ryan: Hello, I have a question regarding a friend with Klinefelter syndrome and osteopenia. If you were to take lab tests out of the equation, these 2 conditions I'm sure immediately bring to mind some interventions and practices you would like to prioritise to improve health and balance in the body. I was wondering if you had some ground level go-to advice based on the presence of these 2 conditions? Much appreciated.   Thank you for tuning into this weekend's Cabral HouseCalls and be sure to check back tomorrow for our Mindset & Motivation Monday show to get your week started off right! - - - Show Notes & Resources:  http://StephenCabral.com/2116 - - - Dr. Cabral's New Book, The Rain Barrel Effect https://amzn.to/2H0W7Ge - - - Join the Community & Get Your Questions Answered: http://CabralSupportGroup.com - - -  Dr. Cabral's Most Popular At-Home Lab Tests: > Complete Minerals & Metals Test (Test for mineral imbalances & heavy metal toxicity) - - - > Complete Candida, Metabolic & Vitamins Test (Test for 75 biomarkers including yeast & bacterial gut overgrowth, as well as vitamin levels) - - - > Complete Stress, Mood & Metabolism Test (Discover your complete thyroid, adrenal, hormone, vitamin D & insulin levels) - - - > Complete Stress, Sleep & Hormones Test (Run your adrenal & hormone levels) - - - > Complete Food Sensitivity Test (Find out your hidden food sensitivities) - - - > Complete Omega-3 & Inflammation Test (Discover your levels of inflammation related to your omega-6 to omega-3 levels)

new books carbs weight gain gluten free dysfunctional carb cabral dns grains cbo gallbladder h pylori cysts stephen cabral klinefelter klinefelter syndrome complete stress complete omega complete candida metabolic vitamins test test mood metabolism test discover sleep hormones test run complete food sensitivity test find inflammation test discover cabralsupportgroup
Dermot & Dave
Irish Couple Share Their Incredible Road To Parenthood

Dermot & Dave

Play Episode Listen Later Aug 31, 2021 12:49


When Gareth Landy and his wife Anna started considering having a family, they could never have imagined the diagnosis they would receive and the long road it would lead them on. [audio mp3="https://media.radiocms.net/uploads/2021/08/31130854/GarethLandy_Infertility_3108.mp3"][/audio] Gareth discovered that he was born with Klinefelter Syndrome, a common but rarely discussed condition. Klinefelter Syndrome typically means being born with an extra X chromosome though Gareth has a 'mosaic' of XXY. People who have Klinefelter Syndrome can struggle massively with infertility, something which caused Gareth and Anna great heartache, leading them to seek help. After being callously told by an Irish consultant that it 'didn't work downstairs', Gareth and Anna had to go abroad to the UK in the hopes of having a child. Speaking to Dermot and Dave, Gareth explained some of the incredible, painful, medical procedures he endured in the hopes of conceiving and why sperm donation became the solution that has led to their beautiful twins. Gareth also offered advice for those who are living with Klinefelter Syndrome, and those who are struggling with fertility. You can catch the chat by clicking play above.  To learn more about Klinefelter Syndrome, and more about Gareth, check the Living with XXY website. 

Livingwithxxy
23 | Life with Klinefelter syndrome: Jared Pike

Livingwithxxy

Play Episode Listen Later Aug 9, 2021 71:36


Jared Pike is the Husband of Christin Pike who was on our show last week. Jared was diagnosed with Klinefelter syndrome after trying to build a family for many years. After Jared's doctor gave him the news using horrible bedside manner. Jared was very confused and went into a deep dark depression over the idea that he wasn't able to father biological children. Jared talks about the rise to acceptance and enjoying life after diagnosis. After multiple failed IUI sperm donor attempts, Jared and his wife found themselves interested in the foster care system. They recently adopted a baby girl and are looking to build their family up in the near future Jared is a special education teacher currently focusing on 4th, 5th, and 6th graders who need IEP's. We look forward to having him back on the show to talk more about his job and how he can help other boys with XXY who are in special needs programs.

The fertilityconversations Podcast
Infertility is nothing to be ashamed about

The fertilityconversations Podcast

Play Episode Listen Later Jul 30, 2021 51:02


Welcome to another episode of Fertility Conversations. Today we are joined by Chris Dunkerley who is an infertility advocate living in the UK. He shares his journey to parenthood with us, finding out about his male factor infertility due to a condition called; Klinefelter Syndrome and the decision to move forward with donor sperm. . . Chris and his wife became parents to a beautiful baby girl. In his quest to ensure his daughter knew the process of how she was conceived, he wrote a beautiful book specifically for her. The book is available on: www.elsiebooks.com In this episode Chris and I also discuss aspects of the book; Stay with Me which is a book set in Nigeria based on infertility and the societal issues and pressures that come with it. Chris highlights how hard it must be to have to live in denial & in societies where people are not open to the realities of Male Factor Infertility. He also stressed the importance of creating awareness and encouraging conversations to destigmatize Male Factor Infertility. . . Join to listen to his incredible story and journey to parenthood. . . Remember to Subscribe, leave a review and give this podcast a 5*rating to help spread more awareness about In(Fertility).  . . This is a podcast that shares stories of fertility & Infertility in Africa & all across the world. Representation Matters. Our stories matter. Our stories help others feel less alone. . If you would like to share your story, I would love to hear from you. Please email me at: fertilityconversations@gmail.com . Infertility | Pregnancy Loss| Childless Not By Choice | Baby Loss | Miscarriages | Male Factor Infertility | Donor Eggs | Fertility | Birth Control | Donor Sperm | Embryo Adoption | Surrogacy | IUI| IVF | Mental Health | Fertility Preservation |Egg Freezing | Sperm Freezing | PTSD | Sexual Cycles | Period Pains Infertility Podcast | Fertility Podcast I Menstruation |Adhesions | Adenomyosis | Fibroids | PCOS | Endometriosis | Irregular Cycles| Blocked Tubes | Fertility related topics |  

Fierce Autie
Autistic Comorbidity: Klinefelter syndrome

Fierce Autie

Play Episode Listen Later Jul 6, 2021 9:11


This episode is also available as a blog post: https://fierceautie.com/2021/07/06/autistic-comorbidity-klinefelter-syndrome/ --- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app

Livingwithxxy
18 | The Voices Of Adults Living With XXY: Russell Martin

Livingwithxxy

Play Episode Listen Later Jul 5, 2021 31:22


Russell Martin is a 46-year-old man with mosaic Klinefelter Syndrome. He lives in Tampa, Florida, with his wife and two sons. After some questions were raised about his delayed onset of puberty when he was 13, the issue was put aside for over 30 years. Russell wasn't officially diagnosed with mosaic Klinefelter Syndrome until 2019.

Livingwithxxy
17 | The Voices Of Adults Living With XXY: Gerald Maynard

Livingwithxxy

Play Episode Listen Later Jun 28, 2021 14:45


Gerald Maynard is a vibrant, fast-talking, social media savvy man living with Klinefelter Syndrome. He resides in St. George, Utah with his wife and mother, where he works as a youth leader and creates content for his widely-followed TikTok accounts. Gerald shared his story about learning about his diagnosis in adulthood, and what it's like to live with 47XXY.

Livingwithxxy
16 | The Voices Of Adults Living With XXY: Charles Plaisance

Livingwithxxy

Play Episode Listen Later Jun 21, 2021 17:18


Charles Plaisance is a 35-year-old man living with Klinefelter Syndrome, or 47 XXY. He resides in East Bethel, MN, with his family. Charles learned about his diagnosis when he and his wife Angela started trying to have a family. After a successful micro TESE withdrawal, they had three biological children. As a devout Catholic, Charles believes in the importance of all life. He wanted to share his story to help others understand the value of living with XXY.

Livingwithxxy
15 | The Voices Of Adults Living With XXY: Jordan Truax

Livingwithxxy

Play Episode Listen Later Jun 14, 2021 12:58


Jordan is a 29-year-old man living in Hughesville, Pennsylvania. While currently experiencing unemployment due to the COVID-19 pandemic, Jordan previously worked as an electrician's helper with his uncle. Jordan is an outgoing man with short blond hair and a quick smile. He is very open about his diagnosis and ready to share about his life with Klinefelter Syndrome.

Livingwithxxy
14 | The Voices Of Adults Living With XXY: Andrew Gagnon

Livingwithxxy

Play Episode Listen Later Jun 7, 2021 22:20


When he was a young boy, Drew knew what he wanted to do with his life. While most young people may not be sure of their path to a career, Drew knew he wanted to be a pilot in the Navy. With dogged determination, he began to forge his path with a single-minded ambition; to sit in the cockpit of an F-14 Tomcat. However, the journey to this goal took many unexpected twists, with a surprise diagnosis of Klinefelter Syndrome, changes in plans, heartbreak, and much self-discovery.

Livingwithxxy
13 | Josh Stanhope: A father's journey, raising a son with Klinefelter syndrome.

Livingwithxxy

Play Episode Listen Later May 31, 2021 51:52


Josh Stanhope is the father of Noah (age 3) who was diagnosed prenatally with Klinefelter syndrome (47 XXY). Josh talks about his journey of learning and understanding what a diagnosis of Klinefelter Syndrome meant. After Noah was born, Josh and his wife Chelsea and Josh told a few family members about the diagnosis. However, they regretted the decision when one day Josh's father held Noah and said, "I can't believe something is wrong with you.” After hearing this, Josh and Chelsea felt alone with Noah's diagnosis, and they didn't tell anyone else for a long time. Josh talks about how finding the community of Living with XXY helped ease their fears and better understand Klinefelter Syndrome. Now, the family is open with Noah and everyone else about the diagnosis. Being a part of the Living with XXY community has given them the support they needed to share their story with others.

Livingwithxxy
12 | The Voices Of Adults Living With XXY: Alex

Livingwithxxy

Play Episode Listen Later May 29, 2021 20:18


Alex is a 34-year-old man with Klinefelter Syndrome living in Centennial, Colorado. He's a gregarious, self-described ginger, with a bright smile, and infectious laugh. Having been raised in Colorado, Alex began looking for opportunities to expand his worldview after graduating from college. When he joined the Peace Corps, he was excited to be assigned to Rwanda, which is in East Africa. However, the experience wasn't exactly what he was hoping for when Alex was struck by a series of mysterious, debilitating symptoms. Upon returning to the United States, he began a long, and at times confusing, journey to discover what was at the root of his health issues.

True Healing with Robert Morse ND
Klinefelter Syndrome, Juvenile Arthritis, Depression

True Healing with Robert Morse ND

Play Episode Listen Later May 19, 2021 45:54


From Q&A 139 - Klinefelter Syndrome, Juvenile Arthritis, Depression YouTube Video - https://youtu.be/0blRF27P0Mw Have a question? Send it to: questions@dmhhc.com Visit the Club at: www.drmorsesherbalhealthclub.com Do you have a podcast, or want to start one? Want to save time and stress creating your episodes and or sound files? Allow us to help. Let Alt Control Delete produce your podcast. For inquiries, please send email to: info@altcontroldelete.com. or call: 917-451-1010.

The Medbullets Step 1 Podcast
Reproductive | Klinefelter Syndrome

The Medbullets Step 1 Podcast

Play Episode Listen Later May 4, 2021 18:35


In this episode, we review the high-yield topic of Klinefelter Syndrome from the Reproductive section. --- Send in a voice message: https://anchor.fm/medbulletsstep1/message

Livingwithxxy
08 | Wife Angela Plaisance: Understanding Klinefelter syndrome

Livingwithxxy

Play Episode Listen Later Apr 12, 2021 25:40


Angela Plaisance is the wife of Charlie Plaisance who was diagnosed with Klinefelter syndrome while trying to build a family together. Angela talks about what it was like from a spouse's perspective upon receiving the news about her husband's diagnosis.

Livingwithxxy
06 | Greg Brimhall and Ryan Bregante: A chat about living with Klinefelter syndrome

Livingwithxxy

Play Episode Listen Later Mar 29, 2021 56:25


Greg Brimhall and Ryan Bregante started talking shortly after Ryan made his first youtube video in 2017. After years of talking they were finally able to meet in person in October of 2020. After recording a podcast together a few episodes ago they both continued to chat. This 50 min episode is raw, unplanned, and full of detailed information. Ryan and Greg are both fully open about their diagnosis and welcome you into their conversation. Enjoy. https://livingwithxxy.org/

Livingwithxxy
04 | Gareth Landy 40: Life with Klinefelter syndrome

Livingwithxxy

Play Episode Listen Later Mar 15, 2021 53:16


Gareth Landy is our first person on the podcast from Ireland. Gareth was diagnosed with Klinefelter syndrome while trying to start a family with his wife who also has multiple sclerosis. He goes in-depth about how he received the gut-wrenching news from the doctor and going through the long and expensive process of sperm extraction via Micro-TESE. After hitting a dead-end, Gareth remained positive. With the help of a sperm donor, Gareth and his wife went thru 3 rounds of IVF before falling pregnant with twins. He is proud to be Living With XXY and would do it all over again if he had to. He has biked the entire length of Ireland to raise money for kids with cancer and has ran 3 full marathons. https://livingwithxxy.org/

Livingwithxxy
03 | Greg Brimhall 35: Life with Klinefelter syndrome

Livingwithxxy

Play Episode Listen Later Mar 8, 2021 58:06


Greg Brimhall found out at the age of 15 when his family decided to switch primary care doctors. After finding out his parents told him not to say anything or talk about his condition. Two years later at 17, he ignored his parent's suggestion and learned self-acceptance. As life went on Greg pushed himself to learn more and better understand his own condition. Greg has a very good perspective about living with Klinefelter syndrome. You can find Greg on Instagram @titan_o_terrror Our website is www.livingwithxxy.org

Livingwithxxy
01 | Dan Mooney 42: Life with Klinefelter syndrome

Livingwithxxy

Play Episode Listen Later Feb 22, 2021 51:43


Dan Mooney was diagnosed with Klinefelter syndrome at the age of 19 when he had a hernia and his doctors noticed his testicle size was really small. After diagnosis and due to lack of information Dan continued to live his life. At the age of 38, he realized his testosterone was under 200 and started injections once a week in his legs. Dan talks about how testosterone has helped him with his mental health and being able to build muscle. He resides in Oregon where he is a full-time graphic designer and runs his own marketing company. https://www.mooney-marketing.com/ Instagram: mooneyinredmond

Livingwithxxy
19 | Michael Palumbo 34: Life with Klinefelter syndrome

Livingwithxxy

Play Episode Listen Later Feb 10, 2021 69:48


Michael Palumbo is an electroacoustic music improviser, teacher and developer. His current activities include teaching how to make music and art with code; “Exit Points”, a monthly online concert series that streams on Twitch; and building a VR-based music synthesizer and programming environment called “Mischmasch” going towards part of his PhD. He performs regularly as a soloist and in ensembles under the pseudonym Thispatcher. www.palumbomichael.com/teaching https://thispatcher.bandcamp.com (Tracks forthcoming) IG @palumbalumbo All of his code: www.github.com/michaelpalumbo Other links mentioned: Donor Conception Canada https://dccanada.org/ 2021 AXYS Family Conference https://genetic.org/2021-axys-family-conference/

Intellectual Erection
Bailey Archer on Being an Intersex Sex Worker

Intellectual Erection

Play Episode Listen Later Feb 1, 2021 46:46


On this episode I speak with Bailey Archer about her experiences as an intersex sex worker and the intersections with transgender identity. Bailey Archer is very popular on Chaturbate under the Trans category; however, she is actually intersex. Specifically, she was born with Klinefelter Syndrome, which is also known as XXY syndrome because of the extra X chromosome. Bailey was assigned male at birth but has always been a woman. We discuss her experiences with intersex and trans identity, how that intersects with her sex work, and what distinguishes intersex from trans people. Find Bailey Archer on: Chaturbate.com/bbarcher Onlyfans.com/bbarcher_ Twitter @bbarcher_ IG @bb.archer Support Intellectual Erection at: patreon.com/intellectualerection Find Intellectual Erection on: IG: @intellectual.erection Twitter: @buttplugpodcast FB: @intellectualerecti0n

Your Health ToGo!
Klinefelter Syndrome

Your Health ToGo!

Play Episode Listen Later Nov 23, 2020 7:29


 You and your partner are trying to get pregnant, but have been struggling, so you get tested by your doctor. They inform you that you have an extra X chromosome and this probably is the cause of your infertility. How does this happen? Can anything be done to correct it? If you do have children, can you pass the defect on to them? 

The Zero to Finals Medical Revision Podcast

This episode covers Klinefelter syndrome.Written notes can be found at https://zerotofinals.com/paediatrics/genetics/klinefelter/ or in the genetics section in the Zero to Finals paediatrics book.The audio in the episode was expertly edited by Harry Watchman.

Men, Sex & Pleasure with Cam Fraser
#28 Intersex: Understanding the Space Between Male & Female (with Toby Whittington)

Men, Sex & Pleasure with Cam Fraser

Play Episode Listen Later Oct 29, 2020 64:06


Today on the podcast, I chat with Toby Whittington. Toby, who uses they/them/he/him pronouns, was diagnosed with Klinefelter Syndrome (47 XXY karyotype) in 2010. Among other issues, Toby found out that they were not able to father children and that they don't produce enough of their own testosterone. He started on Testosterone Replacement Therapy which set him on a path of going through adult puberty, a physical and mental transition which lasted over 8 years. Toby now openly acknowledges that they are an Intersex person and in 2020, when they came out as gender non-binary, this was the first time they felt that their biological sex and their gender identity were aligned. Toby is passionate about educating people around these issues, what it means to be Intersex and the confusion with regards to differences between biological sex, gender identity and sexual orientation. He has and promotes a very open and positive attitude towards sex, sexuality and sexual expression, so long as it is safe and that participation is between consenting adults. Toby and I talk about their experience being Intersex and how it affected their ideas of masculinity as well as what it means to “be a man.” Key Points: - Toby's experience growing up un-knowingly Intersex - Being diagnosed with Klinefelter Syndrome - Testosterone Replacement Therapy and adult puberty - Redefining personal ideas of masculinity - Masculine, Feminine or “Humine?” - Subverting mainstream masculinity - Penis size and cock shaming - Vaginas and vulvas in a phallocentric society - What does it mean to be Intersex? - Sex versus gender versus orientation Relevant links: Cam's Instagram: @thecamfraser Cam's Website: www.cam-fraser.com

Livingwithxxy
18 | Mother Apirl Jones and Son Brett Jones 24: Life With Klinefelter Syndrome

Livingwithxxy

Play Episode Listen Later Oct 28, 2020 58:28


Here we have Brett Jones and his mother April Jones talking to us about what it was like for Brett to get diagnosed in High School with Klinefelter syndrome. April knew something was up when Brett was in the first grade. She fought over the years and never gave up. At 17 Brett was diagnosed with Klinefelter syndrome and after his 1st and 2nd shot of testosterone, his mom says "I finally got to meet my son, he was smiling, laughing and learning to enjoy life". After many years of struggles, Brett started a career in welding and is now part of the union working in a government nuclear facility.

Livingwithxxy
17 | Richard 71: Life with Klinefelter syndrome

Livingwithxxy

Play Episode Listen Later Oct 21, 2020 34:54


Richard who was diagnosed with Klinefelter syndrome at the age of 16 is now 71 years old living an incredible life in the Pacific Northwest. Richard started his career as a teenager delivering newspapers and working the night shift of a cleanup crew. After graduating from a university with a degree in business he worked his way up the corporate ladder to become a member of the board of directors of a large company as well as their CFO. He quit at the age of 52 to enjoy his life and concentrate on his fondness of stock investing and consulting. Richard is the oldest person living with Klinefelter syndrome that Ryan has met to this day. Richard and his spouse enjoy reading and international travel in their spare time. Being an avid investor Richard is proficient with technology and building spreadsheets to manage investments. You can support our nonprofit organization at www.Livingwithxxy.org

Livingwithxxy
14 | Mike Christoff 52: Life with Klinefelter syndrome

Livingwithxxy

Play Episode Listen Later Aug 24, 2020 38:15


Mike Christoff found out he had Klinefelter syndrome at 27 when he was trying to have kids with his first wife. Mike has a BS in graphic design and works as a UX designer. He loves to get outside into the wilderness where he lives in Utah, take photos, go hiking, and enjoy spontaneous exploring. We recommend everyone listens to this podcast who wants to better understand Klinefelter syndrome. Mikes social media can be found here: @mikemantx @redaardvark_design www.livingwithxxy.org

Livingwithxxy
12 | A father's journey: Raising a son with Klinefelter syndrome.

Livingwithxxy

Play Episode Listen Later Aug 9, 2020 28:04


Matt Tatham, father of Jack (Age 2), shares his recent journey of fully accepting and embracing Jack's unique personality & interests. Matt opens up about how his lifelong thoughts about fatherhood were limiting his own relationship with his son. Matt learned to embrace Jack's Klinefelter syndrome. www.livingwithxxy.org

Unchurchable
Zach Cave: Purity Culture, Klinefelter Syndrome and Trauma Recovery

Unchurchable

Play Episode Listen Later Aug 3, 2020 59:41


Trauma recovery is difficult enough when it is a single issue. But when you layer complex trauma with purity culture, religious pressure, murder, suicide, Klinefelter syndrome (also known as being Intersex), you have a potential recipe for disaster. Zach Cave is now a therapist, and has waded his way through difficult waters. His wisdom and discoveries on the journey to recovery make for a surprisingly calming and hopeful podcast episode. I hope you enjoy it.

Livingwithxxy
11 | Stefan Schwarz 50: Life with Klinefelter syndrome

Livingwithxxy

Play Episode Listen Later Jul 11, 2020 49:26


Stefan was diagnosed with Mosaic Klinefelter syndrome in 1996 at 26 years old. He has been a strong advocate since his diagnosis and has attended many conferences over the years meeting a wide range of people with Klinefelter syndrome and all different age groups. We are glad to have him on the show. Here is his website. You can also contact Stefan on Facebook.

Livingwithxxy
09 | Worldwide awareness for Klinefelter syndrome

Livingwithxxy

Play Episode Listen Later Jun 15, 2020 2:00


Living with xxy is a Nonprofit 501.c.3 Charitable Organization raising awareness about Klinefelter syndrome - 47 xxy. We are here to help people all over the world learn more about this condition. By listening to our podcast you will hear voices of our community share their personal stories about overcoming challenges they faced and rising above the outdated information. More information can be found on our website. https://livingwithxxy.org/

Livingwithxxy
08 | Evan Flores 32: Life with Klinefelter syndrome

Livingwithxxy

Play Episode Listen Later Jun 11, 2020 33:28


Evan Flores was born and raised in NYC his entire life. He never left and met his amazing wife Sabrina on August 19th, 2010 After 3 to 4 years of trying to have a family, Evan and Sabrina decided to go in for testing to see why nothing was working. After testing, Evan was diagnosed with Klinefelter syndrome and was in utter shock. “How is it even possible for someone to have an extra chromosome,” he said. Evan and Sabrina did Micro TESE and IVF in the same go and he is blessed with a miracle baby boy named Joshua. Joshua is 7 months old and thriving and Evan is his biological father. Since Evan was born in NYC he understands that having a hustle is part of life. Selling cable door to door as his full-time job, Evan also is the owner of a clothing company inspired by God called Saved. You can feel his love for vintage clothing when he talks so passionately about it. Evans work can be found www.savedco.com

MedFlashGo | 4 Minutes Or Less Daily Rapid Review Of USMLE, COMLEX, And Shelf For Medical Students
#44 Klinefelter Syndrome and Reproductive Hormones l Reproductive |Pathology | MedFlashGo Question of the Day For Medical Students | USMLE, COMLEX, Medical Boards, Shelf

MedFlashGo | 4 Minutes Or Less Daily Rapid Review Of USMLE, COMLEX, And Shelf For Medical Students

Play Episode Listen Later Jun 10, 2020 3:03


Welcome To The MedFlashGo Podcast. This Is Your Daily 4 Minutes Or Less Rapid Review for medical students. Topics are based on medical board examinations including USMLE, COMLEX, And Shelf Exams. We release a new episode every weekday! In this question of the day, Percy asks students to identify the levels of reproductive hormones that are present in a patient with Klinefelter Syndrome. These questions are powered by MedFlashGo The First Voice-based interactive medical question bank currently available on Alexa. This tool allows medical students to study medical topics and be interactively tested without the use of a screen. You can study on your couch, in your car, and on the move without the use of a screen. To get access to the free audio-interactive question bank, click here or go to your Alexa application and search medflashgo In the skills section. To learn more details go to medflashgo.com and check out our frequently asked questions section. Please know that these questions were creatively designed by medical students and physicians for the purpose of education and do not replace health information given from your health professionals. We have tried our best to make sure the information is accurate please, so please let us know if you find any errors and we will be sure to correct them. --- Send in a voice message: https://anchor.fm/medflashgo/message

Livingwithxxy
07 | Australian Geoff Kruck 42: Life with Klinefelter syndrome

Livingwithxxy

Play Episode Listen Later Jun 2, 2020 50:20


Geoff Kruck 42 years old, lives just north of Melbourne, Australia. Geoff found out the hard way he had Klinefelter syndrome. When he got married to his wife, he didn’t have an overbearing desire to have children. Geoff was just thrilled he was marrying his best friend. He thought starting a family would come naturally down the road. Geoff says "you just assume it’s going to happen for you when you’re ready." Geoff was featured in Healthy Male Australia. Living with XXY is a Nonprofit Charitable Organization

Livingwithxxy
05 | Andrew Curry 28: Life with Klinefelter syndrome

Livingwithxxy

Play Episode Listen Later May 14, 2020 35:24


Andrew was diagnosed with Klinefelter syndrome at the age of 16 after waking up one morning saying his testicles were hurting. A trip to the urologist and several doctor visits later he found out why. He talks about what it was like to be diagnosed, being developmentally behind his peers, and how he caught up with life at 22. He is actively involved with raising awareness online and getting his bachelor's degree in cybersecurity.

Livingwithxxy
01 | Klinefelter Syndrome Awareness Introduction

Livingwithxxy

Play Episode Listen Later Apr 19, 2020 9:45


We welcome you to join and subscribe to our brand new podcast series for Klinefelter syndrome awareness. This is our introduction to what the podcast will be all about and how we will grow over time. This podcast gives the voices of our community a chance to share the spotlight. We look forward to having you. Www.livingwithxxy.org

Rare Disease Connection
Klinefelter Syndrome

Rare Disease Connection

Play Episode Listen Later Feb 27, 2020 34:58


Hear from the experts in our conversations on a rare genetic disease: Klinefelter Syndrome.  We cover Klinefelter Syndrome diagnosis, new treatment options, and how to connect with the Klinefelter community.  Experts in this episode include:  *Brenna Bentley, a genetic counseling student completing her masters at The University of Alabama at Birmingham. *Dr. Adrian Dobs, lead physician at the Johns Hopkins Clinical Research Network. More resources and information for you: raredisease.com/ks

The Male Infertility Podcast
Episode 10 : Interview with Raj. We discuss Klinefelter syndrome and how it affected his life.

The Male Infertility Podcast

Play Episode Listen Later Feb 13, 2020 45:16


This episode I interview a great guy called Raj who suffers from Klinefelter syndrome and we discuss how it affected his life in all different ways. We have a chat about men opening up and talking about what we suffer with and ways we can deal with it. he was a great guy to interview and i hope you enjoy the episode. Please send me a message if your interested in coming onto the show as a guest, I would love to be able to interview people to help get across their journeys and stories too. FOLLOW ME : Instagram : @maleinfertilitypodcast Youtube : nickdentonva Audiobooks : https://www.audible.com/pd/The-Saviors-Champion-Audiobook/B07QFFF8YT?qid=1579184824&sr=1-1&pf_rd_p=e81b7c27-6880-467a-b5a7-13cef5d729fe&pf_rd_r=1DSJJK9AYYY1JWBPSK5D&ref=a_search_c3_lProduct_1_1 https://www.audible.com/pd/The-Pursuit-of-Leviathan-Audiobook/B0743LG2D7?qid=1579184824&sr=1-4&pf_rd_p=e81b7c27-6880-467a-b5a7-13cef5d729fe&pf_rd_r=1DSJJK9AYYY1JWBPSK5D&ref=a_search_c3_lProduct_1_4

Knocked Up: The Podcast About Getting Pregnant
Klinefelter Syndrome and Artificial Insemination

Knocked Up: The Podcast About Getting Pregnant

Play Episode Listen Later Oct 15, 2019 21:41


This week we're responding to a listener request and discussing Klinefelter syndrome, a genetic condition that affects approximately 1 in 600 men. It affects fertility and can cause azoospermia (semen that contains no sperm), but the good news is there are fertility treatments that can help men with Klinefelter syndrome to become fathers – that's where artificial insemination comes in. (Which of course can help people in other situations, too!)Tune in to learn more.Join our community! Follow Women's Health Melbourne on Facebook and Instagram (@womenshealthmelbourne), and follow Dr Raelia Lew on Instagram (@drraelialew).Have a question for the hosts? Is there a specific topic you'd like us to cover? Email podcast@womenshealthmelbourne.com.au.For more information on the work we do at Women's Health Melbourne, click here.

WGN - The After Hours with Rick Kogan Podcast
Alan Gresik and his Swing Shift Orchestra

WGN - The After Hours with Rick Kogan Podcast

Play Episode Listen Later Jun 3, 2019


WGN Radio Host Rick Kogan is joined in the Allstate Skyline Studio by Musician Alan Gresik as he discusses how he found his career in 30s Rock and Roll and Swing Era music, his journey with Klinefelter Syndrome, regular performances at Green Mill and more. Be sure to visit Green Mill every Thursday night from […]

WGN - The After Hours with Rick Kogan Podcast
After Hours W/ Rick Kogan Full Show 06/02/19

WGN - The After Hours with Rick Kogan Podcast

Play Episode Listen Later Jun 3, 2019


Tonight on After Hours W/ Rick Kogan: Rick is joined in the Allstate Skyline Studio by Musician Alan Gresik as he discusses how he found his career in 30s Rock and Roll and Swing Era music, his journey with Klinefelter Syndrome, regular performances at Green Mill and more. Be sure to visit Green Mill every […]

Intersexions
Klinefelter Syndrome, The Challenges.

Intersexions

Play Episode Listen Later Aug 7, 2018 12:26


Sonia, Peter, Paul and Andrea join us on Intersexions to explore just a few of the challenges that people with Klinefelters Syndrome deal with on a daily basis. Reproductive health is a concern for most […] http://media.rawvoice.com/joy_archives/p/joy.org.au/intersexions/wp-content/uploads/sites/392/2018/06/Intersexions-20180606.1-Final.mp3 Podcast: Play in new window | Download (Duration: 12:26 — 16.5MB) The post Klinefelter Syndrome, The Challenges. appeared first on Intersexions.

Louisville Lectures Internal Medicine Lecture Series Podcast
Klinefelter Syndrome with Dr. Stephen Winters

Louisville Lectures Internal Medicine Lecture Series Podcast

Play Episode Listen Later Jun 29, 2018


Dr. Stephen Winters presents "Klinefelter Syndrome" through multiple cases. He discusses the diagnoses of patients with Klinfelter Syndrome as well as what to look for in men and women. He then explains the quality of life for someone with KS as well as different treatments offered by various authors.   Some items in this lecture may have come from the lecturer’s personal academic files or have been cited in-line or at the end of the lecture. For more information, see our citation page. Disclaimers©2016 LouisvilleLectures.org

Beat Infertility
BONUS 84: Klinefelter Syndrome 101

Beat Infertility

Play Episode Listen Later Jan 6, 2017 24:06


In BONUS Episode 84 of Beat Infertility, we interview Dr. Allison Rodgers about everything you need to know about Klinefelter Syndrome. Infertility coach Heather Huhman helps warriors like you make scientifically-based, well-informed decisions about your next steps. To schedule your free 30-minute call, go to https://beatinfertility.co/hope.

infertility klinefelter syndrome beat infertility heather huhman
Beat Infertility
BONUS 84: Klinefelter Syndrome 101

Beat Infertility

Play Episode Listen Later Jan 6, 2017 24:06


In BONUS Episode 84 of Beat Infertility, we interview Dr. Allison Rodgers about everything you need to know about Klinefelter Syndrome. If you like the show or this episode in particular, please consider making a one-time or ongoing donation to help with production costs. For more information, go to https://beatinfertility.co/donate.

klinefelter syndrome beat infertility
DNA Today: A Genetics Podcast
#15 Mindful DNA

DNA Today: A Genetics Podcast

Play Episode Listen Later Dec 22, 2014 29:09


A study finds meditating cancer patients are able to affect the makeup of their DNA, hear how they are able to do this. Learn about the Klinefelter Syndrome, which is the presence of an extra X chromosome in males.

The Anonymous Anthropologist Podcast
The Anonymous Anthropologist Podcast: Episode 09

The Anonymous Anthropologist Podcast

Play Episode Listen Later Dec 2, 2012 26:45


Let's Talk About Intersex, part two. Picking up where the previous podcast left off, this episode discusses the effects of having one too many or one too few sex chromosomes.