FASD Hope

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The mission of FASD Hope is to bring awareness, information and inspiration to those whose lives have been touched by an FASD. Each week, Podcast Host Natalie Vecchione will speak with a variety of guests about different topics related to FASD and other brain based diagnoses.

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    • Apr 26, 2023 LATEST EPISODE
    • infrequent NEW EPISODES
    • 42m AVG DURATION
    • 164 EPISODES

    5 from 43 ratings Listeners of FASD Hope that love the show mention: families, much needed, challenges, parents, resource, support, information, host, lot, best, informative, amazing, thank, great, natalie and john, fasd hope.



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    Latest episodes from FASD Hope

    164 - Welcome Back - We Need More Hope! A Conversation with Jennifer Wisdahl and Natalie Vecchione

    Play Episode Listen Later Apr 26, 2023 60:20


    FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder, through the lens of parent advocates with over 20 years of living experience. It's been over 6 months since Natalie Vecchione has released an episode, which was thought to be the last episode. After much prayer and contemplation, Natalie realized that FASD Hope was needed in the FASD Community, even if the frequency of episodes would be reduced. In this episode, Natalie has a heart to heart conversation with Jennifer Wisdahl, COO of FASD United. Natalie shares her heart and her journey of the past 6 months and what pulled her back to FASD Hope.  Jennifer shares a FASD Legislative Update, the MANY new programs and updates with FASD United and upcoming happenings of FASD United.  Welcome back to FASD Hope! "Hope is being able to see that there is light despite all of the darkness." - Bishop Desmond Tutu   EPISODE RESOURCES - FASD United - https://www.fasdunited.org FASD Hope - Instagram - https://www.instagram.com/fasdhope/ Facebook - https://www.facebook.com/fasdhope1  HOPE FOR THE FASD JOURNEY COMMUNITY with Sandra Flach and Natalie Vecchione -  https://www.justicefororphansny.org/hope-community  

    163 - Be Still - Our Final Episode

    Play Episode Listen Later Nov 4, 2022 6:40


    FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience. Episode 163 is our FINAL episode of FASD Hope. For over two years, we have been blessed to be a voice for giving IMPORTANT guests a platform to share their journeys, experience, research, clinical work, legislative activity, philanthropy and inspiration for the FASD Community!  Thank you for listening to our small but mighty family podcast about FASD. We're certainly not experts and we're still on this journey, too. It's now time for us to focus even more on our family, navigate what lies ahead, and face uncertainty with faith and fortitude.  We're SO thankful to be ending this amazing journey by leaving over 160+ episodes of FASD Hope! Thank you for listening, take care and always have HOPE! "The LORD will fight for you; you need only to be still." - Exodus 14:14 Sincerely, Natalie and John Vecchione FASD Hope     

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    162 - The Families and The Kids That We've Left Behind - A Conversation with Best Selling Author, Andrew Bridge

    Play Episode Listen Later Nov 1, 2022 59:08


    FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience. November is National Adoption Month and FASD Hope is honored to highlight Andrew Bridge in Episode 162.  Leaving foster care at eighteen, Andrew Bridge attended Wesleyan University, then graduated from Harvard Law School and he was awarded a Fulbright Fellowship. He began his legal career representing children in mental health facilities across Alabama. His work as an attorney and an advocate enforced children's constitutional rights to be free from staff abuse and to receive meaningful psychiatric care. Andrew returned home to Los Angeles as the CEO of The Alliance for Children's Rights. He defended children at MacLaren Hall, where he was once confined. He won the right for Los Angeles' 60,000 foster children to speak publicly about their treatment. He investigated the excessive removal of African-American babies from their parents, which led to one of the first government initiatives to stop it. Andrew is the Co-Founder of National Adoption Day. He went on to lead one of California's largest recruiters of foster and adoptive parents. Called to address the unjustified placement of foster children in mental institutions, Andrew has served as a Senior Advisor to the State of Illinois. His educational work resulted in the creation of New Village Girls Academy, California's first all-girls high school for parenting teens. Andrew serves on Arizona's Foster Care Review Board and he consults with child welfare systems and foundations. Andrew is also the author of the New York Times AND Los Angeles Times BEST SELLER book, "Hope's Boy: A Memoir". The Washington Post named "Hope's Boy" one of it's Best Books of the Year, with a review that called it "filled with vivid scenes and empathetic description...compulsively readable". In this THOUGHT-PROVOKING episode, Andrew shares: his personal journey and lived experience as a foster child in the Los Angeles Foster Care System, his journey in becoming an attorney and child rights advocate, insights and discussion points from "Hope's Boy", the punitive nature that was / still exists in child welfare systems, his thoughts on how to educate those in the child welfare system about FASD and other brain-based diagnoses, the beginnings of "National Adoption Day" in 2000 and how it's grown, his current work and initiatives and words of hope and encouragement. EPISODE RESOURCES - Andrew Bridge -  Hope's Boy - https://hopesboy.com  LinkedIn - https://www.linkedin.com/in/andrew-bridge-667860210/   FASD Hope Resources - https://www.fasdhope.com/ natalie@fasdhope.com Instagram - https://www.instagram.com/fasdhope/ Facebook - https://www.facebook.com/fasdhope1 Twitter - https://twitter.com/fasdhope LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/ “HOPE FOR THE FASD JOURNEY COMMUNITY”, CO-LEAD BY NATALIE VECCHIONE AND SANDRA FLACH TO LEARN MORE ABOUT “HOPE FOR THE FASD JOURNEY” COMMUNITY OR TO SIGN UP, VISIT THE BELOW LINK -  https://www.justicefororphansny.org/hope-community   Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!

    161 - FASCETS Friday - A Family's Transformation with Lynn and Clare Alsup

    Play Episode Listen Later Oct 28, 2022 41:22


    FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience. Episode 161 is the FINAL FASCETS Friday Episode in which Episode 81 Guest, Lynn Alsup of FASCETS and her daughter, Clare, share how their family was transformed by the FASCETS Neurobehavioral Model. Lynn was our first "FASCETS Friday" guest in Episode 81 - airdate September 14, 2021.  In this ENLIGHTENING episode, Lynn and Clare share the following:  Lynn's work in FASCETS and the progress of her upcoming memoir, their family's FASD journey / life before Clare's FASD diagnosis, learning about the FASCETS Neurobehavioral Model and how it TRANSFORMED their family, how their family is doing now, Clare's accomplishments / important insight and words of hope and encouragement. FASCETS RESOURCES - FASCETS Website - https://fascets.org/ Facebook - https://www.facebook.com/FASCETS Instagram - https://www.instagram.com/fascets_inc/ Twitter - https://twitter.com/FASCETS2   FASD Hope Resources - https://www.fasdhope.com/ natalie@fasdhope.com Instagram - https://www.instagram.com/fasdhope/ Facebook - https://www.facebook.com/fasdhope1 Twitter - https://twitter.com/fasdhope LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/ “HOPE FOR THE FASD JOURNEY COMMUNITY”, CO-LEAD BY NATALIE VECCHIONE AND SANDRA FLACH TO LEARN MORE ABOUT “HOPE FOR THE FASD JOURNEY” COMMUNITY OR TO SIGN UP, VISIT THE BELOW LINK -  https://www.justicefororphansny.org/hope-community   Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!

    160 - The Fellowship of Rural FASD - A Conversation with Rob More

    Play Episode Listen Later Oct 25, 2022 70:28


    FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience. Episode 160 celebrates the AMAZING advocacy, work and fellowship of the Rural FASD Support Network (Ontario, CA). The Rural FASD Support Network was founded by a small group of volunteers with personal knowledge of & lived experience with FASD in rural Ontario (Canada). Today's conversation is with Rob More, Secretary of Rural FASD. Rob and his wife Shelley are proud parents of three amazing young adult children impacted by FASD. Rob, Shelley and four other dedicated volunteers are the co-founders of the Rural FASD Support Network of Eastern Ontario, which is currently the largest, nonprofit, lived disability experience in Canada following "Nothing For Us Without Us". In this HOPE-FILLED EPISODE, Rob shares the following:  the history of the Rural FASD Support Network, the exponential growth & key developments of Rural FASD, the diversity & representation of Rural FASD, the exciting legislative update of the National FASD Framework Legislation in Canada (and how Rural FASD and others advocated on Parliament Hill on October 20th), the blessings (and challenges) of living in a rural area as a family of those with FASD and words of hope and encouragement. "As you have therefore have received Christ Jesus the Lord, so walk in Him, rooted and built up in Him and established in the faith, as you have been taught, abounding in it with thanksgiving."  - Colossians 2: 6-7   EPISODE RESOURCES -  Rural FASD - https://ruralfasd.ca/ email - ruralfasd@gmail.com Instagram - https://www.instagram.com/ruralfasd/ Twitter - https://twitter.com/FasdRural   FASD Hope Resources - https://www.fasdhope.com/ natalie@fasdhope.com Instagram - https://www.instagram.com/fasdhope/ Facebook - https://www.facebook.com/fasdhope1 Twitter - https://twitter.com/fasdhope LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/ “HOPE FOR THE FASD JOURNEY COMMUNITY”, CO-LEAD BY NATALIE VECCHIONE AND SANDRA FLACH TO LEARN MORE ABOUT “HOPE FOR THE FASD JOURNEY” COMMUNITY OR TO SIGN UP, VISIT THE BELOW LINK -  https://www.justicefororphansny.org/hope-community   Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!

    159 - All About FASD - FASD and Bullying Part 2 With Dr. Jerrod Brown

    Play Episode Listen Later Oct 18, 2022 39:59


    FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience. Returning to FASD Hope is regular guest and friend in FASD advocacy, Dr. Jerrod Brown in Episode 159 - "All About FASD - FASD and Bullying Part 2". Jerrod Brown, Ph.D., M.A., M.S., M.S., M.S. is a professor, trainer, researcher and consultant with multiple years of experience teaching collegiate courses. Jerrod is also the founder and CEO of the American Institute for the Advancement of Forensic  Studies (AIAFS) and the Editor in Chief of Forensic Scholar Today (FST).  In this second episode about FASD and Bullying, Jerrod further explores the following topics: why it's critical to have a good knowledge of FASD / bullying, the links between bullying and self-destructive actions, cyberbullying, how bullying erodes mental health in individuals with FASD (and why they are already susceptible with mental health diagnoses), the further implications of bullying to already existing trauma and attachment issues, where to look for resources and words of encouragement and hope. EPISODE 159 RESOURCES - Dr. Jerrod Brown - jerrod01234brown@live.com American Institute for the Advancement of Forensic Studies (AIAFS) - https://aiafs.com Facebook - https://www.facebook.com/AIAFSAssoc Twitter - https://twitter.com/AIAFS2011   FASD Hope Resources - https://www.fasdhope.com/ natalie@fasdhope.com Instagram - https://www.instagram.com/fasdhope/ Facebook - https://www.facebook.com/fasdhope1 Twitter - https://twitter.com/fasdhope LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/ Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

    158 - Breaking the Pipeline - A Conversation with Dr. Deanna Westedt

    Play Episode Listen Later Oct 11, 2022 67:05


    FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience. Episode 158 of FASD Hope explores a controversial topic: the School to Prison Pipeline (STPP).  The STPP or SPP is the significantly increased tendency of students from disadvantaged backgrounds, students with brain-based diagnoses, developmental disabilities and BIPOC students to become involved in the juvenile justice system. In today's episode, discussing the STPP and it's implications for students with brain-based diagnoses (including FASD, Autism, ADHD, etc.) is Dr. Deanna Westedt. Dr. Deanna Westedt received a doctorate in curriculum and instruction and spent 22 years in education. Currently, she homeschools and provides guidance for families, both homeschooled and traditionally schooled.  She has a special passion for twice-exceptional students and providing learning that goes outside of a classroom box. Her insights into twice-exceptionality have been featured in publications and venues such as Psychology Today, Future First Education, and CABE. Dr. Westedt's research was featured in AERA 2020. However, her best accomplishment is that of the growth her boys made during their time in homeschooling so far, where her ideas on how to accommodate their special combination of giftedness and learning disabilities paid off. She currently provides coaching and writing sessions, as well as specializes in early literacy that can be blended into any type of setting. Additionally, she provides parent sessions, diagnostics, and flexible differentiation training for homeschool/ educational organizations. In this highly informative and thought-provoking episode, Dr. Westedt shares the following: her professional background, her family's journey, her passion for creating academic equity for all students, how she became aware of the STPP, how students with brain-based diagnoses (including FASD) become even more susceptible to getting involved in the STPP, addressing how the traditional cycle of discipline reinforces the STPP (especially for students with developmental disabilities & brain-based diagnoses), how a systemic shift is required to break this cycle, how to better support those students involved in the STPP / JJ systems and her words of hope for listeners.  "Trust in the LORD with all your heart, And lean not on your own understanding; In all your ways acknowledge Him, And He shall direct your paths." - Proverbs: 5-6   EPISODE RESOURCES - Dr. Deanna Westedt - https://deannawestedt.com/ info@deannawestedt.com Facebook - https://www.facebook.com/drwestedt Instagram - https://www.instagram.com/dr.deannawestedt/ LinkedIn - https://www.linkedin.com/in/deanna-westedt-ed-d-64a2741b1/   FASD Hope Resources - https://www.fasdhope.com/ natalie@fasdhope.com Instagram - https://www.instagram.com/fasdhope/ Facebook - https://www.facebook.com/fasdhope1 Twitter - https://twitter.com/fasdhope LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/   HOPE FOR THE FASD JOURNEY ONLINE COMMUNITY - Co-Lead By Natalie Vecchione and Sandra Flach -  Hope for the FASD Journey is a faith-based, membership support community for parents and caregivers of individuals prenatally exposed to alcohol and other substances. Led by Natalie Vecchione of the FASD Hope Podcast and Sandra Flach of the Adoption & Foster Care Journey Podcast— 2 moms living the FASD experience. With more than 20 years of adoptive parenting each, Natalie & Sandra offer abundant knowledge and resources to provide hope to families on this journey. “ TO LEARN MORE ABOUT THE “HOPE FOR THE FASD JOURNEY COMMUNITY” OR TO SIGN UP, VISIT THE BELOW LINK -  https://www.justicefororphansny.org/hope-community   Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

    157 - Bullied, Broken, Redeemed - A Conversation with Candice Dugger

    Play Episode Listen Later Oct 4, 2022 55:28


    FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience. October is National Bullying Prevention Month. Episode 157 welcomes back Candice Dugger (Season 1, Episode 39, Feb. 25, 2021) to highlight her CRITICAL work in bullying awareness / prevention / education  through "Bullied, Broken,  Redeemed". Candice is a nationally-recognized anti-bullying expert, author, speaker and trainer. Candice and her team at Bullied, Broken, Redeemed specialize in equipping leaders, parents and youth on all aspects of Gen-Z Bullying. Candice also is the co-founder of "Reimagine Education Conference", which specializes in helping families transition to homeschool. Finally, Candice is the founder of Kids Business Academy, an organization that comes alongside parents to teach the essentials of entrepreneurship. In this INFORMATIONAL and INSPIRATIONAL episode, Candice explores the following: Candice's family's journey with bullying / starting BBR, statistics, facts about bullying & kids / teens with neurodiversity, myths about bullying, how bullying is a cultural epidemic, key points about bullying, how BBR and her other initiatives support and help heal children / teens who have been through bullying and her words of hope and inspiration for listeners. "Therefore comfort each other and edify one another, just as you also are doing."  - 1 Thessalonians 5:11   EPISODE RESOURCES - Candice Dugger - https://candicedugger.com/index.html Instagram - https://www.instagram.com/cedugger/ Bullied, Broken and Redeemed Facebook - https://www.facebook.com/bulliedbrokenredeemed LinkedIn - https://www.linkedin.com/in/candice-dugger-1a606952/   FASD Hope - https://www.fasdhope.com/ natalie@fasdhope.com Instagram - https://www.instagram.com/fasdhope/ Facebook - https://www.facebook.com/fasdhope1 Twitter - https://twitter.com/fasdhope LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/ Racket - @fasdhope Clubhouse - @natalievecc Check out our  book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!  

    156 - It's Our Two Year Podversary! With Guest Host Jennifer Wisdahl

    Play Episode Listen Later Sep 30, 2022 51:30


    FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience. FASD Hope Podcast is celebrating it's 2 year anniversary ( aka "Podversary")! FASD Hope launched on October 1, 2020. We are airing this milestone episode (a day early) on Friday, September 30th - International Podcasting Day. FASD Hope is thrilled to be active and embraced in both the FASD and Podcasting Communities!  Episode 156 is also a first for FASD Hope, in that our "Most Frequent Guest", Jennifer Wisdahl of FASD United is this episode's GUEST HOST.  Jennifer and Natalie have a heart to heart conversation with much warmth, hope and joy! EPISODE RESOURCES - FASD United -  https://www.fasdunited.org Jennifer Wisdahl of FASD United - wisdahl@fasdunited.org FASD Hope - https://www.fasdhope.com/ natalie@fasdhope.com Instagram - https://www.instagram.com/fasdhope/ Facebook - https://www.facebook.com/fasdhope1 Twitter - https://twitter.com/fasdhope LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/ Racket - @fasdhope Clubhouse - @natalievecc Check out our  book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

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    155 - Oshays Brain Domain - An Update with Maryelen and Paula McPhail

    Play Episode Listen Later Sep 27, 2022 31:41


    FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience.  Episode 155 welcomes back the AMAZING mother / daughter team of Maryelen and Paula McPhail of Oshays Brain Domain (formerly Oshays FASD). Maryelen is a FASD parent advocate and Paula is an FASD Self-Advocate. Together, they are the leadership behind Oshays Brain Domain - a Social Enterprise based in Ayr, Scotland with a mission of supporting families / children with FASD. Since their previous episode (#66 - airdate July 13, 2021), Maryelen and Paula have wonderful updates about: their global expansion, supports, programs and FASD advocacy initiatives through Oshays Brain Domain!    EPISODE RESOURCES -  Oshays Brain Domain / FASD - https://www.oshaysfasd.org/ Facebook - https://www.facebook.com/oshaysbraindomain Instagram - https://www.instagram.com/oshays_fasd/ Twitter - https://twitter.com/OshaysFASD LinkedIn - https://www.linkedin.com/in/maryelen-mcphail-fasd-969663165/ Email - info@oshays.org Phone - +44 (0) 01292 261094  (Scotland) The FASD Article that Paula wrote / shared - https://metro.co.uk/2022/09/09/my-mums-pregnancy-drinking-caused-me-lasting-damage-17307228/   FASD Hope - https://www.fasdhope.com/ natalie@fasdhope.com Instagram - https://www.instagram.com/fasdhope/ Facebook - https://www.facebook.com/fasdhope1 Twitter - https://twitter.com/fasdhope LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/ Racket - @fasdhope Clubhouse - @natalievecc Check out our  book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

    154 - FASCETS Friday - FASD in Spouses with Suzanne Emery

    Play Episode Listen Later Sep 23, 2022 55:59


    FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience. September is FASD Awareness Month!  FASD Hope is thrilled to welcome back previous guest (Episodes 89, 112) and FASCETS Facilitator, Suzanne Emery for FASCETS Friday! Suzanne Emery has a Master in Leadership Nursing and she is a Family Nurse Practitioner. She is a Certified Facilitator of the FASCETS Neurobehavioral Model and she is a FASCETS Program Director. Today's FASCETS Friday episode topic is "FASD in Spouses". Suzanne has experience working with couples where one of the spouses or partners has a Fetal Alcohol or Neurobehavioral Diagnosis. Given the prevalence of FASD and Other Brain Based Diagnoses, Suzanne shares how determining a suspected FASD or other Neurobehavioral Diagnosis is critical with couples who are encountering tension and unresolvable challenges in their relationships.  Suzanne also discusses the following topics: exploring FASD/NB as the root if there are difficulties in a marriage / relationship, how to know if a spouse were on the FASD spectrum, why seeking a diagnosis (or ruling out an FASD) would be critical in a marriage / relationship, what to do if you suspect your spouse has an FASD, support or training that can help and stories of hope. NOTE - If you are interested in learning more about an online support group for spouses of those adults with FASD, email Suzanne at suzemery28@gmail.com EPISODE RESOURCES- FASCETS - https://fascets.org/ Facebook - https://www.facebook.com/FASCETS Instagram - https://www.instagram.com/fascets_inc/ Twitter -https://twitter.com/FASCETS2 To learn more about the online workshop opportunities given by FASCETS, click on the below link for more information or to register.  https://fascets.org/workshops/ Note - If you decide to sign up for a FASCETS training, please let FASCETS know that you were referred by FASD Hope (as this helps in supporting FASD Hope as an organization).   FASD Hope - https://www.fasdhope.com/ natalie@fasdhope.com Instagram - https://www.instagram.com/fasdhope/ Facebook - https://www.facebook.com/fasdhope1 Twitter - https://twitter.com/fasdhope LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/ Racket - @fasdhope Clubhouse - @natalievecc Check out our  book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

    153 - Embrace Our Journey with Jeremy Elliott and William G.

    Play Episode Listen Later Sep 20, 2022 49:42


    FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience. It's September- FASD Awareness Month! Episode 153 of FASD Hope jumps into the ring of AWESOME FASD Advocacy with Jeremy Elliott and William G. of "Embrace Our Journey".  Jeremy Elliott is a martial arts teacher, champion and owner of United Family Martial Arts in Niagara Falls, Ontario (Canada). He is also a Top 500 Pro Wrestler.  Jeremy created the "Embrace Our Journey" FASD Advocacy campaign with his teen godson, William G, an FASD self-advocate. Together, Jeremy and Will are champion FASD advocates! In this MOTIVATIONAL episode, Jeremy and William discuss: the beginnings of "Embrace Our Journey", the MANY FASD Advocacy events they have for September and October, how martial arts and wrestling has made such a powerful impact (and support) in William's life, the benefits of finding a martial arts school that can be a good fit for students with FASD (or other brain based diagnoses) and their words of hope for listeners. EPISODE RESOURCES - United Family Martial Arts (Canada) - https://www.ufmaniagara.com/ Jeremy Elliott - ufmaniagarafalls1@gmail.com Facebook - https://www.facebook.com/UFMANiagara https://www.facebook.com/JeremyNickVickersElliott Instagram - https://www.instagram.com/jeremyelliottnf/   FASD Hope - https://www.fasdhope.com/ natalie@fasdhope.com Instagram - https://www.instagram.com/fasdhope/ Facebook - https://www.facebook.com/fasdhope1 Twitter - https://twitter.com/fasdhope LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/ Racket - @fasdhope Clubhouse - @natalievecc Check out our  book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

    152 - FASD, 504's and IEP's - A Lesson with Shannon Iacobacci

    Play Episode Listen Later Sep 13, 2022 44:38


    FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with more than twenty years of lived experience. Episode 152 welcomes back two-time guest, Shannon Iacobacci of "Embracing the Brain". Shannon is a mom of multiple children with varying developmental disabilities, including Fetal Alcohol Spectrum Disorder (FASD). As an FASD specialist, Shannon helps families living with FASD. She also helps students with executive functioning struggles, attention, behaviors, memory, social & adaptive skills, and mental health needs.  Shannon's in-depth experience includes being a FASD Specialist, FASD Public Speaker/Trainer for multiple organizations, school districts, Child and Family Services, foster family agencies, & universities, a Certified facilitator - FASCETS Neurobehavioral Model, 18 + years IEP experience. In this RESOURCEFUL and HELPFUL episode, Shannon explores the following topics: her business / services through "Embracing the Brain", IEP / 504 basics, the differences in IEP's for students with FASD vs. other brain based diagnoses, top accommodations that are seen on 504s/IEPs of students with FASD, tips for parents / caregivers when going into 504 / IEP meetings and her words of hope and encouragement (especially for the new school year). "Now may the God of hope fill you with all joy and peace in believing, that you may abound in hope by the power of the Holy Spirit." - Romans 15:13   Shannon's previous episodes on FASD Hope were - Episode 5 -"FASD and Teens" Episode 26 - Climbing Down Holiday Mountain"   EPISODE RESOURCES -  Embracing the Brain website - www.EmbracingTheBrain.com  Email - Shannon@EmbracingTheBrain.com  Instagram - https://www.instagram.com/shannon.iacobacci/ LinkedIn - https://www.linkedin.com/in/shannon-iacobacci-92982016a/  Facebook - https://www.facebook.com/EmbracingTheBrain    FASD Hope - https://www.fasdhope.com/ natalie@fasdhope.com Instagram - https://www.instagram.com/fasdhope/ Facebook - https://www.facebook.com/fasdhope1 Twitter - https://twitter.com/fasdhope LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/ Racket - @fasdhope Clubhouse - @natalievecc Check out our  book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!      

    151 - FASD at 50 - A Conversation with Dr. Kenneth Lyons Jones and Andrea Torzon

    Play Episode Listen Later Sep 9, 2022 51:47


    FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through he lens of parent advocates with over twenty years of lived experience.  Episode 151 is airing on September 9th - International FASD Awareness Day titled "FASD at 50" with Dr. Kenneth Lyons Jones and Andrea "Andy" Torzon, LMFT of the University of California San Diego School of Medicine's Institute for Fetal Alcohol Spectrum Disorders Discovery. This important episode highlights returning guest, Dr. Kenneth Lyons Jones, who is considered the leading expert in FASD and who was one of two doctors at the University of Washington, who first identified Fetal Alcohol Syndrome (FAS) in the United States in early 1973. Dr. Jones is joined by Andrea Torzon, LMFT, a family therapist who works with Dr. Jones at the UC San Diego's Institute for FASD Discovery. As the 50 year anniversary of the first identification of FAS approaches, this special episode is titled "FASD at 50" and shares highlights from Dr. Jones' Keynote presentation "FASD at 50" from NOFASD Australia's "The FASD Forum '22 Virtual Conference". In addition to Dr. Jones' highlights from this important presentation, Andrea "Andy" Torzon shares her work and professional perspective of working with families at the UC San Diego Institute for FASD Discovery and through her nonprofit organization "Twinkle, Twinkle LIttle Farm".  Together, Dr. Jones and Andy discuss the following topics: the stigma that continues to surround FASD 50 years after the identification of FAS, the "4 Critical Issues" in understanding and moving forward in the FASD community, the importance of reframing wording and discussions to reduce stigma associated with FASD,  the importance of establishing FASD Centers of Excellence in each state and their words of hope and encouragement.   EPISODE RESOURCES - Dr. Kenneth Lyons Jones -https://www.rchsd.org/doctors/kenneth-lyons-jones-md/ https://betterbeginnings.org/who-we-are/leadership/ https://betterbeginnings.org/who-we-are/leadership/dr-kenneth-lyons-jones-md/ https://medschool.ucsd.edu/som/pediatrics/Divisions/dysmorphology/about/Pages/Dysmorphology_Teratology_Division_Members.aspx https://pediatrics.med.ubc.ca/2018/03/20/a-retrospective-look-at-43-years-of-fetal-alcohol-spectrum-disorder-fasd-how-did-we-get-here-from-where-we-started/ https://www.facebook.com/UCSDcbb/ https://twitter.com/ucsdcbb https://www.instagram.com/ucsdcbb/ Andrea "Andy" Torzon - https://betterbeginnings.org/what-we-do/patient-care/fetal-alcohol-spectrum-disorder-clinic/programs/ Twinkle, Twinkle Little Farm Nonprofit - LinkedIn - https://www.linkedin.com/in/andrea-andy-torzon-576b2283/ Facebook - https://www.facebook.com/twinkletwinklelittlefarm Instagram - https://www.instagram.com/twinkletwinklelittlefarm/ YouTube - https://www.youtube.com/channel/UCNPSUMYBTDDObZvdXhZ_mdQ   FASD Hope - https://www.fasdhope.com/ natalie@fasdhope.com Instagram - https://www.instagram.com/fasdhope/ Facebook - https://www.facebook.com/fasdhope1 Twitter - https://twitter.com/fasdhope LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/ Racket - @fasdhope Clubhouse - @natalievecc Check out our  book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

    150 - Let's Go! - Run FASD 2022 Virtual 5K Finale

    Play Episode Listen Later Sep 8, 2022 27:02


    FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience. FASD Hope is HONORED to be a part of TEAM RUN FASD 2022, which is Coach Rebecca Tillou, Jenn Wisdahl, Susan Elsworth and Natalie Vecchione. Episode 150 is “Let's Go”,  an update, important information & the official launch for this 2nd Annual Virtual 5K for FASD! The Run FASD Virtual 5K will be held September 9th - 25th, 2022. It's not too late to register, registration is open until September 14th, 2022. Listen to this final update of Run FASD 2022 Virtual 5K and learn how you can participate, promote and support this 2nd Annual Virtual 5K for FASD! EPISODE RESOURCES - Run FASD Virtual 5K website - https://runfasd.org/ Instagram - https://www.instagram.com/runfasd/?hl=en Facebook - https://www.facebook.com/groups/runfasd FASD United - https://fasdunited.org/ FASD HOPE RESOURCES -FASD Hope - https://www.fasdhope.com/ natalie@fasdhope.com Instagram - https://www.instagram.com/fasdhope/ Facebook - https://www.facebook.com/fasdhope1 Twitter - https://twitter.com/fasdhope LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/ Racket - @fasdhope Clubhouse - @natalievecc Check out our  book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

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    149 - MASS FAS - A Conversation with Kristen Eriksen and Laura Bedard

    Play Episode Listen Later Sep 6, 2022 29:15


    FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience. September is FASD Awareness Month!  Episode 149 highlights Kristen Eriksen and Laura Bedard of MASS FAS, an FASD United Affiliate. Kristen and Laura are both moms of children with FASD and united in their advocacy in their leadership of MASS FAS. In this ENCOURAGING episode, Kristen and Laura share: how they became parent advocates (from their respective families' journeys), how MASS FAS has grown in the past year, what they have learned as FASD parent advocates, their advice for parents who want to take that leap into FASD parent advocacy, the many offerings of MASS FAS for Massachusetts (and beyond), their upcoming work for MASS FAS and their words of encouragement and hope.   EPISODE RESOURCES -  MASS FAS website - https://www.massfas.org/ Facebook - https://www.facebook.com/massfetalalcoholsyndrome Instagram - https://www.instagram.com/massfas1/ Twitter - https://twitter.com/massfas1   FASD Hope - https://www.fasdhope.com/ natalie@fasdhope.com Instagram - https://www.instagram.com/fasdhope/ Facebook - https://www.facebook.com/fasdhope1 Twitter - https://twitter.com/fasdhope LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/ Racket - @fasdhope Clubhouse - @natalievecc Check out our  book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

    148 - All About FASD Special Edition - A Panel Discussion with Dr. Jerrod Brown

    Play Episode Listen Later Sep 1, 2022 68:35


    FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience. It's September, which is FASD Awareness Month!  Episode 149 welcomes back Dr. Jerrod Brown to continue our series within the series “All About FASD Special Edition- A Panel Discussion". This month, Jerrod will be answering a variety of questions / subtopics within FASD. Jerrod Brown, Ph.D., M.A., M.S., M.S., M.S. is a professor, trainer, researcher and consultant with multiple years of experience teaching collegiate courses. Jerrod is also the founder and CEO of the American Institute for the Advancement of Forensic Studies (AIAFS) and the Editor-in-Chief of Forensic Scholars Today (FST). In this FASD RESOURCE AND INFORMATION PACKED episode, Jerrod answers questions from FASD podcasters around the world! Our FASD Podcast Panelists include: Kurt Lewis, Pregnancy and Alcohol, The Surprising Reality Podcast Gilberto Spencer-Wired Differently - Rewire Your Brain Podcast Robbie Seale, FASD Family Life Podcast Sandra Flach - The Adoption and Foster Care Journey Podcast Natalie Vecchione- FASD Hope Podcast Episode 148 Resources - Dr. Jerrod Brown - jerrod1234brown@live.com American Institute for the Advancement of Forensic Studies (AIAFS) - https://aiafs.com/ Facebook - https://www.facebook.com/AIAFStraining Instagram - https://www.instagram.com/aiafsassoc/ Twitter - https://twitter.com/AIAFS2011 LinkedIn - https://www.linkedin.com/in/aiafs/?miniProfileUrn=urn%3Ali%3Afs_miniProfile%3AACoAABntPzUB2qCg_fmbOMKXQbRSlzI9pSfdRG4   FASD Hope - https://www.fasdhope.com/ natalie@fasdhope.com Instagram - https://www.instagram.com/fasdhope/ Facebook - https://www.facebook.com/fasdhope1 Twitter - https://twitter.com/fasdhope LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/ Racket - @fasdhope Clubhouse - @natalievecc Check out our  book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

    147 - All About FASD - FASD and Bullying - Part 1 with Dr. Jerrod Brown

    Play Episode Listen Later Aug 30, 2022 40:09


    FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience.  Episode 147 is the second of a two part episode special in preparing for "Back to School / Back to Homeschool" - FASD and Bullying - Part 1 with regular guest, Dr. Jerrod Brown.  Jerrod Brown, Ph.D., M.A., M.S., M.S., M.S. is a professor, trainer, researcher and consultant with multiple years of experience teaching collegiate courses. Jerrod is also the founder and CEO of the American Institute for the Advancement of Forensic  Studies (AIAFS) and the Editor in Chief of Forensic Scholar Today (FST).  In this episode, Jerrod discusses the following topics: the basics of bullying, risk factors that cause individuals with FASD (and other brain based diagnoses) to be more susceptible to bullying, the protective factors, what to know when helping individuals with FASD who are being bullied, symptoms and traumatic effects of bullying, where to look for resources and words of encouragement and hope. Note - the second Bullying episode with Dr. Jerrod Brown will be aired in October. Episode 146 Resources - Dr. Jerrod Brown - jeffod1234brown@live.come American Institute for the Advancement of Forensic Studies (AIAFA) - https://aiafs.com/ 612-250-5432 Facebook - https://www.facebook.com/AIAFSAssoc Twitter- https://twitter.com/aiafs2011 LinkedIn - https://www.linkedin.com/in/aiafs/   FASD Hope - https://www.fasdhope.com/ natalie@fasdhope.com Instagram - https://www.instagram.com/fasdhope/ Facebook - https://www.facebook.com/fasdhope1 Twitter - https://twitter.com/fasdhope LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/ Racket - @fasdhope Clubhouse - @natalievecc Check out our  book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

    146 - All About FASD - FASD and Friendship Skills with Dr. Jerrod Brown

    Play Episode Listen Later Aug 30, 2022 46:26


    FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience.  Episode 146 is the first of a two part episode special in preparing for "Back to School / Back to Homeschool" - FASD and Friendship Skills with regular guest, Dr. Jerrod Brown.  Jerrod Brown, Ph.D., M.A., M.S., M.S., M.S. is a professor, trainer, researcher and consultant with multiple years of experience teaching collegiate courses. Jerrod is also the founder and CEO of the American Institute for the Advancement of Forensic  Studies (AIAFS) and the Editor in Chief of Forensic Scholar Today (FST).  In this episode, Jerrod explores the following topics: the basics of friendship skills, what skills are required in making and maintaining friends, the risk factors that individuals with FASD (and other brain based diagnoses) have in not having healthy friendships, the protective factors for helping individuals with FASD make and maintain friendships, advice and words of encouragement and hope. Episode 146 Resources - Dr. Jerrod Brown - jeffod1234brown@live.come American Institute for the Advancement of Forensic Studies (AIAFA) - https://aiafs.com/ 612-250-5432 Facebook - https://www.facebook.com/AIAFSAssoc Twitter- https://twitter.com/aiafs2011 LinkedIn - https://www.linkedin.com/in/aiafs/   FASD Hope - https://www.fasdhope.com/ natalie@fasdhope.com Instagram - https://www.instagram.com/fasdhope/ Facebook - https://www.facebook.com/fasdhope1 Twitter - https://twitter.com/fasdhope LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/ Racket - @fasdhope Clubhouse - @natalievecc Check out our  book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!  

    145 - It's OK to Be You: Living Well with FASD or Other Disabilities with Kenny LaJoy

    Play Episode Listen Later Aug 23, 2022 44:23


    FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience. Welcome to the official book launch of "It's OK to Be You - Living Well with FASD or Other Disabilities" by Kenny LaJoy!  Episode 145 celebrates new author, Kenny LaJoy and his new book, which is a valuable resource for ANYONE in the FASD community, neurodiversity community...and many more! Episode 145 is the "story behind the book". Kenny shares: his adoption journey, his FASD journey, his journey in becoming an independently published author, his faith, his hopes for his new book and how "It's OK to Be You" is an affirmation and resource for those with FASD, their families / loved ones or anyone wanting to learn more through the lens of a FASD self-advocate. EPISODE RESOURCES -  "It's OK to Be You - Living Well with FASD or Other Disabilities" by Kenny LaJoy Available now on Amazon https://www.amazon.com/dp/B0B7QP8PFC/ref=cm_sw_em_r_mt_dp_3FZJ6DAVTV6JJF2YEFEH Contact Kenny at itsoktobeyoubook@gmail.com Blue Collar Homeschool - https://www.bluecollarhomeschool.com/ Buckaroos Slices and Scoops - https://www.buckaroosmontrose.com/   FASD Hope - https://www.fasdhope.com/ natalie@fasdhope.com Instagram - https://www.instagram.com/fasdhope/ Facebook - https://www.facebook.com/fasdhope1 Twitter - https://twitter.com/fasdhope LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/ Racket - @fasdhope Clubhouse - @natalievecc Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

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    144 - Hope for the FASD Journey Community with Sandra Flach and Natalie Vecchione

    Play Episode Listen Later Aug 15, 2022 43:10


    FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience. Episode 144 is the celebration of an exciting announcement - "Hope for the FASD Journey Community" with Sandra Flach and Natalie Vecchione. Together, Sandra and Natalie have formed a faith-based, FASD parent and caregiver support group community. Through their combined decades of lived experience as moms (of now young adults) of those with FASD, their resources through their years podcasting experience and Sandra's nonprofit organization, Justice for Orphans.....Sandra and Natalie are creating the "Hope for the FASD Journey Community" to support families of those with FASD / Brain Based Diagnoses. In Episode 144, Natalie and Sandra discuss: how their friendship has grown, Sandra provides an update about her FASCETS Facilitator Training, how God planted the seed in both Sandra and Natalie for creating the "Hope for the FASD Journey" Community and what is included in the "Hope on the FASD Journey" Community Membership. The "Hope on the FASD Journey" Community will officially begin it's first support group meeting on Tuesday, September 20, 2022, however interested individuals / family members may sign up now for this membership community through the following link -  https://www.justicefororphansny.org/hope-community   EPISODE RESOURCES -  Hope for the FASD Journey Community: Membership & Information https://www.justicefororphansny.org/hope-community   Justice for Orphans - https://www.justicefororphansny.org/home Sandra's Podcast - "The Adoption and Foster Care Journey" Podcast - available anywhere you find your podcasts. https://www.justicefororphansny.org/podcast   FASD HOPE RESOURCES - FASD Hope - https://www.fasdhope.com/ natalie@fasdhope.com Instagram - https://www.instagram.com/fasdhope/ Facebook - https://www.facebook.com/fasdhope1 Twitter - https://twitter.com/fasdhope LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/ Racket - @fasdhope Clubhouse - @natalievecc Check out our  book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

    143 - Get Set- Run FASD 2022 Virtual 5K Update

    Play Episode Listen Later Aug 9, 2022 34:36


    FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience. FASD Hope is THRILLED to be a part of Team Run FASD 2022 - comprised of Coach Rebecca Tillou, Jenn Wisdahl, Susan Elsworth and Natalie Vecchione. Episode 143 is an update that highlights getting set and important information for this 2nd Annual Virtual 5K for FASD! The Run FASD Virtual 5K will be held September 9th - 25th, 2022. EPISODE RESOURCES - Run FASD Virtual 5K website - https://runfasd.org/ Instagram - https://www.instagram.com/runfasd/?hl=en Facebook - https://www.facebook.com/groups/runfasd FASD United - https://fasdunited.org/   FASD HOPE RESOURCES -FASD Hope - https://www.fasdhope.com/ natalie@fasdhope.com Instagram - https://www.instagram.com/fasdhope/ Facebook - https://www.facebook.com/fasdhope1 Twitter - https://twitter.com/fasdhope LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/ Racket - @fasdhope Clubhouse - @natalievecc Check out our  book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

    142 - Amazing Advocacy - A Conversation with Yvonne Williams

    Play Episode Listen Later Aug 2, 2022 60:48


    FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience. Episode 142 is titled "Amazing Advocacy" and highlights Yvonne Williams and her incredible advocacy contributions to the FASD Community. Yvonne started her FASD journey when she adopted her daughter in 2007. Over the years, she became not only a champion for her daughter, but also for the FASD Community. In 2014, she started the blog "Our Sacred Breath" to share her involvement with the Red Shoes Rock Campaign and the creation of 99 Days to FASDay information series, which has been running annually since 2017. In addition, she served on the Advisory Committee for the Ontario (Canada) Provincial FASD Website and she has moderated several online FASD Groups over the years. In 2018, Yvonne and her daughter started sharing their stories in caregiver groups, workshops, conferences and launched a Redbubble Shop to create and sell FASD swag and merchandise. Currently, she remains active in low-key advocacy activities and she works part-time for Jeff Noble, as his external specialist.    EPISODE RESOURCES - Our Sacred Breath Blog - https://oursacredbreath.com/ Facebook - https://www.facebook.com/allaboutfasd Instagram - https://www.instagram.com/allaboutfasd/ Twitter - https://twitter.com/oursacredbreath 99 Days to FASDay https://oursacredbreath.com/2017/09/09/99-days-to-fasday-master-post/ Red Shoes Rock - https://redshoesrock.com/   FASD Hope - https://www.fasdhope.com/ natalie@fasdhope.com Instagram - https://www.instagram.com/fasdhope/ Facebook - https://www.facebook.com/fasdhope1 Twitter - https://twitter.com/fasdhope LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/ Racket - @fasdhope Clubhouse - @natalievecc Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!  

    141 - Embraced Film - An Update with Joel Sheagren, Jodee Kulp and Justen Overlander

    Play Episode Listen Later Jul 26, 2022 58:49


    FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience. Episode 141 welcomes back Joel Sheagren and welcomes Jodee Kulp and Justen Overlander of the Embraced Film Project - Joel Sheagren (Season 1, Episode 22) is the Director and Co-Producer of the Embraced Film Project, Justen Overlander (Writer / Director / Producer of many films and series, including "The Chosen") and Jodee Kulp (Founder of Red Shoes Rock, Author, FASD Champion Advocate) are both  Co-Producers.  "The documentary weaves together honest interviews, surprising data, and a scripted narrative inspired by true case studies. Beyond the film, our goal is to create supplemental educational materials to better educate families, teachers, law enforcement, and health providers about this under-the-radar epidemic. The title, Embraced, is inspired by the way Director and Co-Producer Joel Sheagren embraces his son Sam's FASD, and for the countless others who face serious lifelong challenges. Those with FASD have never had advocacy like we're providing through this project." (Source - embracedmovement.org) Listen to Joel, Jodee and Justen share how the Embraced FASD Film Movement has grown, fundraising efforts, goals for 2022 (and beyond) and their hopes in this amazing film and movement. "Jesus said to him, 'You shall love the LORD your God with all your heart, with all your soul, and with all your mind.' This is the first and great commandment. And the second is like it: 'You shall love your neighbor as yourself.' On these two commandments hang all the Law and Prophets." - Matthew 22:37-40   EPISODE RESOURCES - Embraced - https://www.embracedmovement.org/ Facebook - https://www.facebook.com/EmbracedFASD/ Instagram - https://www.instagram.com/embracedfasd/?hl=en   FASD Hope - https://www.fasdhope.com/ natalie@fasdhope.com Instagram - https://www.instagram.com/fasdhope/ Facebook - https://www.facebook.com/fasdhope1 Twitter - https://twitter.com/fasdhope LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/ Racket - @fasdhope Clubhouse - @natalievecc Check out our  book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

    140 - FASD and Speech Therapy - A Conversation with Christian Hancock

    Play Episode Listen Later Jul 19, 2022 47:24


    FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience. In Episode 140, FASD Hope welcomes Christian Hancock, M.S., CCC-SLP , who is the Creator of Communication with Connection, Owner of Heart and Soul Speech and a Board Member of the North Texas FASD Network. Christian is a certified speech-language pathologist, specializing in pediatric feeding disorders, language disorders, and caregiver/child relationships. She is the owner of Heart & Soul Speech, serving families at home in North Texas. Her practice focuses on routine-based language intervention, responsive feeding therapy, and sustainable support for families. Christian presents caregiver workshops and continuing education seminars and webinars for therapists on trauma-informed care, FASD, feeding disorders, and language learning. She is the creator of Communication with Connection, a philosophy and practice that empowers families with ways to develop language, find mealtime peace, and build relationships through simple everyday moments. She currently serves on the Board of Directors for LifePath Systems Foundation and North Texas FASD Network. In this RESOURCE-FILLED episode, Christian discusses: how she became involved with the FASD population as a SLP, why Speech Therapy is SO vital in the care/support of infants/children/teens/young adults with FASD, her work in the FASD community, her work with North Texas FASD Network and her words of hope and encouragement. EPISODE RESOURCES - Heart & Soul Speech: www.heartandsoulspeech.com Facebook  https://www.facebook.com/heartandsoulspeech Instagram  https://www.instagram.com/heart_soul_speech/?hl=en LinkedIn https://www.linkedin.com/in/christian-hancock-58960a166/   North Texas FASD Network: https://northtexasfasd.org/ Facebook @NorthTexasFASDNetwork (private group, ask to join) Instagram https://www.instagram.com/northtexasfasd/?hl=en   FASD HOPE RESOURCES -   FASD Hope - https://www.fasdhope.com/ natalie@fasdhope.com Instagram - https://www.instagram.com/fasdhope/ Facebook - https://www.facebook.com/fasdhope1 Twitter - https://twitter.com/fasdhope LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/ Racket - @fasdhope Clubhouse - @natalievecc Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

    139 - Run FASD 2022 - A Conversation with Team Run FASD

    Play Episode Listen Later Jul 12, 2022 36:38


    FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience. FASD Hope is THRILLED to be a part of Team Run FASD 2022 and this episode highlights the growth, exciting updates and important information of this 2nd Annual Virtual 5K for FASD! This episode features: Run FASD Coach- Rebecca Tillou, Jenn Wisdahl and Susan Elsworth.  Listen to Rebecca, Jenn and Susan share how Run FASD has grown, their hopes in this one-of-a-kind Virtual 5K and hope in what Run FASD 2022 will do for the FASD community... and beyond! This year's Run FASD 2022 Registration Options: Option 1 - $35 - Full Registration - Medal, T-Shirt and Race Tag Option 2 - $20 - T-Shirt Option 3 -  $15 - Race Medal (Race Tags can also be purchased for $5)   EPISODE RESOURCES - RUN FASD -https://runfasd.org/ Facebook - https://www.facebook.com/groups/489485015438968 Instagram - https://www.instagram.com/runfasd/ FASD United - https://fasdunited.org/   FASD HOPE RESOURCES -  FASD Hope - https://www.fasdhope.com/ natalie@fasdhope.com Instagram - https://www.instagram.com/fasdhope/ Facebook - https://www.facebook.com/fasdhope1 Twitter - https://twitter.com/fasdhope LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/ Racket - @fasdhope Clubhouse - @natalievecc Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

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    138 - Season 3 Premiere - FASD Fireworks in Florida - A Conversation with Lindsey Munns

    Play Episode Listen Later Jul 5, 2022 40:14


    FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience. Welcome to Season 3 of FASD Hope!  FASD Hope is honored to welcome back FASD parent advocate, Lindsey Munns. Lindsey Munns is a parent advocate for FASD. She attended the University of Utah, where she got her degree in Community Policy & Consumer Studies. She also studied education, is a TBRI practitioner, and is currently finishing up her FASCETS facilitator certification. She is a mom of four, including two on the FASD spectrum, which is how Lindsey became a parent advocate. Along with her husband, she is passionate about spreading awareness about the dangers of alcohol during pregnancy.  Lindsey is the founder of "FASD Furfighters", a service dog organization specifically for those with FASD. FASD Furfighters is also a team of dogs spreading FASD awareness.   In this INSPIRATIONAL episode, Lindsey gives the following updates: her family's journey, her FASD Advocacy work in Florida (and beyond), FASD legislative efforts in Florida, her FASCETS and TBRI training, FASD Furfighters, FASD Florida, the importance of becoming an FASD parent advocate while parenting "in the trenches" and her words of hope.   "Have I not commanded you? Be strong and of good courage; do not be afraid, nor be dismayed, for the LORD your God is with you wherever you go."   - Joshua 1:9   Episode 138 Resources :   FASD Furfighters - https://fasdfurfighters.org/ Instagram - https://www.instagram.com/fasdfurfighters/   FASD Florida - https://www.instagram.com/fasd.florida/   FASD Awareness Fighters - https://www.justgiving.com/team/FASDAwarenessFighters   Lindsey's last episode on FASD Hope was Episode 19 - “Advocating Coast to Coast".   FASD Hope -   https://www.fasdhope.com/ natalie@fasdhope.com Instagram - https://www.instagram.com/fasdhope/ Facebook - https://www.facebook.com/fasdhope1 Twitter - https://twitter.com/fasdhope LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/ Racket - @fasdhope Clubhouse - @natalievecc Check out our  book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!  

    137 - Hope is Gritty - Season 2 Finale

    Play Episode Listen Later May 31, 2022 14:26


    FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience. Episode 137 is the Season 2 Finale, titled "Hope is Gritty" (Title Source - Jillana Goble). FASD Hope Co-Founder / Executive Producer / Host Natalie Vecchione shares her heart and what she has learned about hope in her journey as a mom of a young adult with an FASD. "I wait for the LORD, my whole being waits, and in His word I put my hope." - Psalm 130:5   FASD Hope - https://www.fasdhope.com/ natalie@fasdhope.com Instagram - https://www.instagram.com/fasdhope/ Facebook - https://www.facebook.com/fasdhope1 Twitter - https://twitter.com/fasdhope LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/ Racket - @fasdhope Clubhouse - @natalievecc Check out our  book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

    136 - A Love-Stretched Life - Part 2 - A Conversation with Jillana Goble

    Play Episode Listen Later May 24, 2022 28:40


    FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience. May is Foster Care Awareness Month and Episodes 135 & 136 feature Jillana Goble, author of “A Love-Stretched Life”. Jillana Goble is a speaker, author, and advocate. She hold's a master's degree in teaching. Together with her husband, Luke, she parents five children ranging in age from preteen to young adult. She's passionate about getting the faith community -as well as the community at large- to link arms with the state's overburdened child welfare system to uplift vulnerable children in foster care and those who serve them. Jillana is the founder of Every Child Oregon. In these hope-filled & uplifting episodes, Jillana discusses the following: Part 1 - her family's journey, founding “Every Child Oregon”, her hopes for her upcoming book "A Love-Stretched Life", what she has learned about FASD & how it's impacted her family. Part 2 - Diving into her new book “A Love-Stretched Life”, her faith, FASD, how to get her upcoming book & her words of hope & encouragement. "He has shown you, O man, what is good; And what does the LORD require of you But to do justly, To love mercy, And to walk humbly with your God."  - Micah 6:8   EPISODE RESOURCES - Jillana Goble - https://jillana-goble.com/ https://jillana-goble.com/books/ Instagram - https://www.instagram.com/jillanagoble/?hl=en   Every Child Oregon - https://everychildpdx.org/about-us/our-story/ Facebook - https://www.facebook.com/everychildoregon Instagram - https://www.instagram.com/everychildoregon/?hl=en LinkedIn - https://www.linkedin.com/company/every-child-oregon/ Twitter - https://www.twitter.com/EveryChildOR   FASD Hope - https://www.fasdhope.com/ natalie@fasdhope.com Instagram - https://www.instagram.com/fasdhope/ Facebook - https://www.facebook.com/fasdhope1 Twitter - https://twitter.com/fasdhope LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/ Racket - @fasdhope Clubhouse - @natalievecc Check out our  book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

    135 - A Love-Stretched Life - Part 1 - A Conversation with Jillana Goble

    Play Episode Listen Later May 24, 2022 41:41


    FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience. May is Foster Care Awareness Month and Episodes 135 & 136 feature Jillana Goble, author of “A Love-Stretched Life”. Jillana Goble is a speaker, author, and advocate. She hold's a master's degree in teaching. Together with her husband, Luke, she parents five children ranging in age from preteen to young adult. She's passionate about getting the faith community -as well as the community at large- to link arms with the state's overburdened child welfare system to uplift vulnerable children in foster care and those who serve them. Jillana is the founder of Every Child Oregon. In these hope-filled & uplifting episodes, Jillana discusses the following: Part 1 - her family's journey, founding “Every Child Oregon”, her hopes for "A Love-Stretched Life", what she has learned about FASD & how it's impacted her family. Part 2 - Diving into her new book “A Love-Stretched Life”, her faith, FASD, how to get her upcoming book & her words of hope & encouragement.   "He has shown you, O man, what is good; And what does the LORD require of you But to do justly, To love mercy, And to walk humbly with your God."  - Micah 6:8   EPISODE RESOURCES - Jillana Goble - https://jillana-goble.com/ https://jillana-goble.com/books/ Instagram - https://www.instagram.com/jillanagoble/?hl=en   Every Child Oregon - https://everychildpdx.org/about-us/our-story/ Facebook - https://www.facebook.com/everychildoregon Instagram - https://www.instagram.com/everychildoregon/?hl=en LinkedIn - https://www.linkedin.com/company/every-child-oregon/ Twitter - https://www.twitter.com/EveryChildOR   FASD Hope - https://www.fasdhope.com/ natalie@fasdhope.com Instagram - https://www.instagram.com/fasdhope/ Facebook - https://www.facebook.com/fasdhope1 Twitter - https://twitter.com/fasdhope LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/ Racket - @fasdhope Clubhouse - @natalievecc Check out our  book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!  

    134 - Parent Caregiver Mental Health - A Conversation with Jess Ronne

    Play Episode Listen Later May 21, 2022 52:54


    FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.   BONUS MENTAL HEALTH MONTH EPISODE!   May is Mental Health Awareness Month and Episode 134 shines a light on Jess Ronne! Jess Ronne is an author, speaker, podcast host at Coffee with Caregivers, associate producer of Unseen, and caregiver advocate.  She is founder and executive director of The Lucas Project—a non-profit dedicated to providing recognition and respite for special needs families. She and her husband Ryan live in Michigan with their 8 children, including their son Lucas who has profound special needs. Her story of beauty from ashes has been shared on The Today Show, Daily Mail and Huffington Post and is detailed in her memoir Sunlight Burning at Midnight.  To follow the ongoing saga she can be found at www.jessplusthemess.com or purchase her latest book, Blended with Grit and Grace.    In this critically important episode, which airs in conjunction with the release of "Unseen: Caregiver Documentary", Jess shares the following: her parenting / family's journey, their family's challenges, becoming a ROCK STAR advocate for the Parent Caregiver Community, the importance of caregiver mental health, her many initiatives (including the new Unseen Caregiver Documentary", her faith in her journey, key facts about parent caregivers and her words of hope and encouragement.   EPISODE RESOURCES -  Jess Ronne https://www.jessplusthemess.com/   Facebook - https://www.facebook.com/coffeewithcaregivers Facebook - https://www.facebook.com/caregiverdoc/ Instagram - https://www.instagram.com/jessplusthemess/ LinkedIn - https://www.linkedin.com/in/jessica-ronne-4b412670/ Twitter - https://www.twitter.com/jessplusthemess   The Unseen Caregiver Documentary, which features The Ronne family, is to view online from May 20-26th, 2022. For more information or to purchase a ticket - https://caregiverdoc.com/   FASD Hope - https://www.fasdhope.com/ natalie@fasdhope.com Instagram - https://www.instagram.com/fasdhope/ Facebook - https://www.facebook.com/fasdhope1 Twitter - https://twitter.com/fasdhope LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/ Racket - @fasdhope Clubhouse - @natalievecc Check out our  book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

    133 - The Reel Hope Project - A Conversation with Abby Marino

    Play Episode Listen Later May 17, 2022 33:59


    FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience. May is Foster Care Awareness Month and Episode 133 features The Reel Hope Project and Abby Marino, who is the Director of Operations and Outreach at this Minnesota nonprofit organization. "The Reel Hope Project focuses on creating recruitment profile videos for foster youth with no chance of reunification.  We work with counties and adoption agencies to find foster kids their forever families. Each video we create highlighting a child's story helps to solidify the reality that foster youth enter the child welfare system through no fault of their own." (Source - The Reel Project) Abby Marino is the Director of Operations and Outreach at The Reel Hope Project, a Minnesota nonprofit organization creating recruitment profile videos for foster youth with no chance of reunification. With a heart for amplifying nonprofit narratives specific to vulnerable populations, Abby enjoys supporting the vision of foster care youth finding their forever families. She oversees operating procedures at The Reel Hope Project and appreciates the full circle of her role in coordinating shoot days with dedicated social workers and ultimately connecting prospective families to begin the adoption licensing process. Abby initiates big picture outreach and expansion opportunities, and works closely with each new state lead as the organization grows beyond the Midwest. Episode 133 highlights the following: Abby's experience as a sibling of a young adult with FASD and her professional experience, the history and development of The Reel Hope Project, initiatives and upcoming events for The Reel Hope Project, how The Reel Hope Project has supported the foster care community and words of hope and encouragement.   "Test all things; hold fast what is good." - 1 Thessalonians 5:21   EPISODE RESOURCES -  The Reel Hope Project https://www.thereelhopeproject.org/ info@thereelhopeproject.org Facebook - https://www.facebook.com/thereelhopeproject/ Instagram - https://www.instagram.com/reel_hope/ LinkedIn - https://www.linkedin.com/company/thereelhopeproject/ Twitter - https://twitter.com/reelhopeproject Phone - 612-888-0494   FASD Hope - https://www.fasdhope.com/ natalie@fasdhope.com Instagram - https://www.instagram.com/fasdhope/ Facebook - https://www.facebook.com/fasdhope1 Twitter - https://twitter.com/fasdhope LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/ Racket - @fasdhope Clubhouse - @natalievecc Check out our  book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

    132 - Silent No More - A Conversation with Miranda B.

    Play Episode Listen Later May 11, 2022 82:27


    FASD Hope is  a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.  May is Foster Care Awareness Month and the voices of those individuals who have been in Foster Care are so CRITICAL in our community. Episode 132 features Miranda B., an adult FASD self-advocate, who was also a youth in Foster Care in British Columbia, Canada. Miranda's journey and story is EXTREMELY important  in the conversation of Foster Care Awareness and Support. Miranda is now an adult living in British Columbia and she is a photographer and runs an online support group for adults with FASD. Through her online support group, she hopes to provide support and encouragement for other adults with FASD. Her goal is to educate and provide awareness of FASD and speaking out about the injustices that face so many youths in Foster Care.   EPISODE RESOURCES - Miranda B. - mandy-gcorp@hotmail.com Miranda on Facebook - https://www.facebook.com/MandyGraffmations Miranda on Instagram -  https://www.instagram.com/mggraff22   FASD Hope - https://www.fasdhope.com/ natalie@fasdhope.com Instagram - https://www.instagram.com/fasdhope/ Facebook - https://www.facebook.com/fasdhope1 Twitter - https://twitter.com/fasdhope LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/ Racket - @fasdhope Clubhouse - @natalievecc Check out our  book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

    131 - Foster Hope NY - A Conversation with Hannah Bender

    Play Episode Listen Later May 10, 2022 15:05


    FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience. Episode 131 features Hannah Bender of Foster Hope NY, which is Foster Care Support Ministry based in Syracuse, NY.  Foster Hope's Mission is to "ignite the hearts of their communities, businesses and churches to advocate for & meet the needs of children and families in foster care." Foster Hope NY provides monthly support groups, community events, business impact partners and a foster closet.  Hannah shares the resources provided by Foster Hope NY, how it's grown in the past year and upcoming events. "Pure and defiled religion before God and the Father is this: to visit orphans and widows in their trouble, and to keep oneself unspotted from the world." - James 1:27   EPISODE RESOURCES - Foster Hope NY https://www.fosterhopeny.org hannah@fosterhopeny.org Instagram - https://www.instagram.com/fosterhopeny/   FASD Hope - https://www.fasdhope.com/ natalie@fasdhope.com Instagram - https://www.instagram.com/fasdhope/ Facebook - https://www.facebook.com/fasdhope1 Twitter - https://twitter.com/fasdhope LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/ Racket - @fasdhope Clubhouse - @natalievecc Check out our  book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!          

    130 - Digging Deeper in FASD - A Conversation with Ann Yurcek

    Play Episode Listen Later May 3, 2022 75:04


    FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.  May is National Foster Care Month, a time to acknowledge and support children, youth, families and professionals in the foster care system.  FASD Hope is honored to have Ann Yurcek of Red Shoes Rock and Digging Deeper as the guest of Episode 130.  Ann Yurcek is a writer, mentor, speaker, and advocate for professional, caregivers and individuals in the exceptional needs communities. She is a strong advocate for children with special needs in the foster care and adoption system. Ann and her husband Jim are the loving parents of twelve children, seven of twelve children have special needs. Their daughter, Becca, taught them how to make a difference for Mac, child number twelve. Mac is a medical marvel and Furry: The Little Penguin That Could is written in the hope of supporting inclusion for children living with trauma, physical, emotional and intellectual challenges and features them both "Rocking Their Red Shoes".  Ann is the founder and prior administrator of Parenting FASD Kids and Parenting Children with FASD Digging Deeper Support Groups for caregivers and parents living with children who have brain and body challenges due to prenatal alcohol exposure. She shares and enlightens parents and caregivers with her incredible journey at her website - www.ParentingComplexChildren.com and she co-directs the International Red Shoes Rock Stop FASD campaign. In 2006, Ann authored the Dove and Mom's Choice Gold Award Winning Memoir, "Tiny Titan: Journey of Hope". Her new children's books, "Furry: The Little Penguin That Could" and "Furry: The Little Penguin Who Cares". Ann believes if we embrace diversity in Kindergarten, we have the opportunity to lessen bullying and build understanding and acceptance for everyone and the concept of Emotional Support Partners for kids. Everyone matters! In this heartfelt and inspirational conversation, Ann discusses: their family's journey, their family's FASD and Foster Care journeys, her decades-long legacy in the FASD community, the over 428+ comorbid medical conditions associated with FASD, her books, her strong faith and her words of encouragement and hope. "Those who hope in the LORD will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint." - Isaiah 40:31   EPISODE RESOURCES - Red Shoes Rock - https://redshoesrock.com/ Furry The Penguin- https://furrythepenguin.com/ Facebook - https://www.facebook.com/RedShoesRock                   https://www.facebook.com/parentingcomplexchildren Instagram - https://www.instagram.com/redshoesrock_fasdaware/?hl=en Etsy Store - https://www.etsy.com/shop/MacFurryRockRedShoes?ref=shop_sugg   FASD Hope - https://www.fasdhope.com/ natalie@fasdhope.com Instagram - https://www.instagram.com/fasdhope/ Facebook - https://www.facebook.com/fasdhope1 Twitter - https://twitter.com/fasdhope LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/ Racket - @fasdhope Clubhouse - @natalievecc Check out our  book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!  

    129 - A Legacy in FASD and Law - A Conversation with Kay Kelly

    Play Episode Listen Later Apr 28, 2022 46:51


    FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience. FASD Hope is honored to welcome Kathryn "Kay" Kelly in Episode 129, titled "A Legacy in FASD and Law". Kathryn Kelly, called Kay by most who know her, came to the University of Washington after an extensive career in criminal justice. She worked for nine years as a probation officer for the state of California, and for twenty years as a federal probation officer. She was retrained as a mitigation specialist and served for three years as part of a team assembled by the Capital Habeas Unit of the Federal Public Defender in Los Angeles to represent inmates on Death Row seeking redress of their death penalty sentences. In 2001, Kay joined the Fetal Alcohol and Drug Unit (FADU) at the University of Washington, working with Dr. Ann Streissguth. With a grant from the Robert Wood Johnson Foundation, she and Dr. Streissguth established the FASD Legal Issues Resource Center. In that role, Ms. Kelly has planned and/or participated in numerous trainings for judges, defense attorneys, prosecutors and other court professional throughout the United States, and in numerous foreign countries. Since 2013, she has organized a series of conferences about FASD and the law held in conjunction with the biennial UBC - Vancouver International Conference on FASD. Ms. Kelly was instrumental in the organization of the first forensic FASD diagnostic team, FASDExperts, and in the passage of an American Bar Association Resolution on FASD in 2012. Ms. Kelly is also a Research Coordinator for a National Institute of Alcohol Abuse and Alcoholism (NIAAA)-funded five year project: Fetal Alcohol Spectrum Disorders in Adults: Health and Neurobehavior.  Ms. Kelly is a Board member of the FASD United Affiliate - Washington. In this ENLIGHTENING episode, Kay discusses the following: her work and contributions in the FASD community, her amazing work with Dr. Ann Streissguth / FASD Legal Resource Center, her current projects and initiatives....and words of experience, encouragement and hope for parents and caregivers. EPISODE RESOURCES - Kathyrn "Kay" Kelly - faslaw@uw.edu Tel- 206-616-5408 https://adai.uw.edu/staff_members/kay-kelly/ University of Washington - FADU https://www.washington.edu/research/research-centers/fetal-alcohol-and-drug-unit/ FASD Resolution - ABA https://www.americanbar.org/groups/public_interest/child_law/resources/attorneys/fasd-resolution/   FASD Hope - https://www.fasdhope.com/ natalie@fasdhope.com Instagram - https://www.instagram.com/fasdhope/ Facebook - https://www.facebook.com/fasdhope1 Twitter - https://twitter.com/fasdhope LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/ Racket - @fasdhope Clubhouse - @natalievecc Check out our  book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!  

    128 - The FASD Collaborative Project - A Conversation with Emily Rusnak

    Play Episode Listen Later Apr 26, 2022 51:27


    FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience. Episode 128 welcomes Emily Rusnak and highlights her amazing advocacy through MC FARES and The FASD Collaborative Project. Emily Rusnak, Ph.D., CCC-SLP is the founder and project coordinator for the FASD Collaborative Project, a cross-organization international initiative to increase high-quality training and support options for caregivers, self-advocates, and professionals in the FASD community. Dr. Rusnak is also the vice president for Michigan's FASD United affiliate and has served on the Executive Council for FASD United. In this enlightening episode, Emily discusses the following topics: her professional background and her family's journey, MC FARES, The FASD Collaborative Project, upcoming events and words of encouragement and hope.   EPISODE RESOURCES -  MC FARES - https://www.mcfares.org/ Twitter - https://twitter.com/MCFARESNOFASMI   The FASD Collaborative Project -  https://www.fasdcollaborative.com/ Facebook - https://www.facebook.com/FASDCollaborative   FASD Hope - https://www.fasdhope.com/ natalie@fasdhope.com Instagram - https://www.instagram.com/fasdhope/ Facebook - https://www.facebook.com/fasdhope1 Twitter - https://twitter.com/fasdhope LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/ Racket - @fasdhope Clubhouse - @natalievecc Check out our  book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

    127 - Unseen Documentary - A Conversation with Amanda and Tom Dyer

    Play Episode Listen Later Apr 21, 2022 30:13


    FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience. Episode 127 features Tom and Amanda Dyer, Creators / Directors / Producers, of the upcoming documentary "Unseen: How We're Failing Parent Caregivers and Why It Matters". Tom and Amanda share what inspired them to create this MUCH NEEDED documentary, what they learned in making the "Unseen Caregiver Documentary" and words of hope for parent caregivers. "The Unseen Documentary film follows Jess and Ryan Ronne, a blended family with 8 children, including Lucas, who has profound disabilities requiring total care. Their situation has gotten more and more challenging as Lucas gets older and stronger. With limited resources and support, caregiving takes a toll on their physical health. It's a common story among parent caregivers: the isolation, uncertainty about the future, lack of options , and a never-ending daily to-do list means the role of caregiver overpowers nearly ever other facet of life. Video diaries from diverse caregivers featured in the film illustrate this universality, while interviews with mental health experts and policy / legal advocates provide a broader view on the societal impacts." Objectives of the Unseen Documentary Film include: -  Give an unfiltered glimpse into the lives of parent caregivers and their real challenges. -  Shed light on how difficult it can be to get support and solutions. -  Establish strategic partnerships to enable real change.   The Global Online Premiere of the "Unseen Caregiver Documentary" will be held May 20-26, 2022. See the below for links / more information. EPISODE RESOURCES - Website: https://caregiverdoc.com/ Premiere Event: https://caregiverdoc.com/premiere/ Facebook: https://www.facebook.com/caregiverdoc/ Instagram: https://www.instagram.com/caregiverdoc/   FASD HOPE - FASD Hope - https://www.fasdhope.com/ natalie@fasdhope.com Instagram - https://www.instagram.com/fasdhope/ Facebook - https://www.facebook.com/fasdhope1 Twitter - https://twitter.com/fasdhope LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/ Racket - @fasdhope Clubhouse - @natalievecc Check out our  book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

    126 - 4 Paws For Ability - A Conversation with Kelly Camm and Laurie Hodne

    Play Episode Listen Later Apr 19, 2022 39:23


    FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience. Episode 126 is with "4 Paws For Ability". 4 Paws for Ability enriches the lives of people with disabilities by placing life changing service dogs. 4 Paws for Ability is a nonprofit organization, founded in 1998 and has placed over 1600 service dogs with individuals (and their families) with disabilities. To meet this objective, 4 Paws for Ability breeds dogs for their service program with their health, temperament,, and potential skills in mind. In this episode, Kelly Camm (Development Director) and Laurie Hodne (Parent of a Child with FASD / Family with a Service Dog) discuss the following: the history of 4 Paws for Ability, Laurie's journey as a mom of a child with an FASD, some of the techniques / therapeutic benefits of service dogs, how Laurie's daughter (and family) dramatically benefitted and improved since the placement of their service dog and words of hope and encouragement for listeners.   EPISODE RESOURCES -  4 Paws for Ability https://www.4pawsforability.org/ Facebook - https://www.facebook.com/4pawsforability/ Instagram - https://www.instagram.com/4pawsforability/ Twitter - https://twitter.com/4PawsForAbility LinkedIn - https://www.linkedin.com/company/4-paws-for-ability-inc/ YouTube - https://www.youtube.com/channel/UC0M1yrIxG3BIyknZRCeRlNw   FASD Hope - https://www.fasdhope.com/ natalie@fasdhope.com Instagram - https://www.instagram.com/fasdhope/ Facebook - https://www.facebook.com/fasdhope1 Twitter - https://twitter.com/fasdhope LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/ Racket - @fasdhope Clubhouse - @natalievecc Check out our  book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!    

    125 - FASD Legislative Update - A Conversation with Susan Shepard Carlson and Jenn Wisdahl

    Play Episode Listen Later Apr 12, 2022 42:31


    FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience. Episode 125 welcomes back the "Dynamic Duo" of Susan Shepard Carlson, Former First Lady of Minnesota and Chair of the FASD United Legislative and Policy Committee and Jenn Wisdahl, FASD Policy and Training Center Coordinator. Together, Susan and Jenn provide an important update of The FASD Respect Act HR4151 / S2238, the progress of the bill, the exciting FASD legislative momentum picking up in various states, ways to advocate for the bill and why NOW is the most important time to reach out to your two senators and representative about The FASD Respect Act and their words of hope and encouragement for the FASD community IMPORTANT - You can text your 2 senators and 1 representative in the US to share your support and ask for their co-sponsorship / support of The FASD Respect Act HR4151 / S2238 TEXT TO CONNECT -  1. TEXT THE WORDS: SIGN PRVJQX  to : 50409 2.  Follow the instructions when you receive the reply.   For more information about TEXT TO CONNECT - https:///nofaspolicycenter.org/text-your-support-for-the-fasd-respect-act/   EPISODE RESOURCES -  For More Information about The FASD Respect Act (or potential FASD legislation happening in your state in the US) - https://nofaspolicycenter.org/the-fasd-respect-act/   Jenn Wisdahl - wisdahl@fasdunited.org 202-601-2530 FASD United - http://fasdunited.org/ Facebook - https://www.facebook.com/fasdunited Instagram - https://www.instagram.com/fasdunited/ Twitter - https://twitter.com/FASDUnited LinkedIn - https://www.linkedin.com/company/fasd-united/   FASD Hope - https://www.fasdhope.com/ natalie@fasdhope.com Instagram - https://www.instagram.com/fasdhope/ Facebook - https://www.facebook.com/fasdhope1 Twitter - https://twitter.com/fasdhope LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/ Racket - @fasdhope Clubhouse - @natalievecc Check out our  book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

    124 - The FAS Project- Netherlands - A Conversation with Luke Schut and Dami Munter

    Play Episode Listen Later Apr 5, 2022 58:31


    FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience. Episode 124 highlights “The FAS Project Netherlands” with Luke Schut (Project Coordinator) and Dami Munter (Foster Mother & Parent Advocate).  The FAS project is part of non-profit organization ‘Het Witte Bos', which initiates transmedial projects on the cutting edge of journalism, art and society. The FAS-project started as a journalistic initiative, but eventually developed into a big, multimedia awareness campaign, showing the potentially dangerous consequences of alcohol consumption during pregnancy. By storytelling, the FAS Project raises attention to a relatively unknown problem in a personal way. The FAS-project started in 2013 and launched with the book FAS-kinderen (Children with FAS). The FAS-project will continue until at least 2025, under the name FAS2025. In the past years the project developed and gained a wider reach & more impact. FAS2025 tells the story of Isiah, Lorenzo, Marcella, Mila and Jasmijn, following their journey towards adulthood for ten years. Their stories are told by a collection of stories, portraits and mini-documentaries. To give children with FAS(D) a face, make FAS(D) less abstract and to tell what FAS(D) means to them and how it impacts their lives. The project also consists of expositions, books, a podcast, a college tour to inform future professionals about FAS, readings at professional organizations who (may) come in contact with FAS(D), and The Buddy Project. Almost all of the materials of The FAS Project are translated in English/have English subs. However, the podcast is in Dutch. In Episode 124, Luke & Dami share: the history of The FAS Project, Dani's journey as a foster mother learning about FASD, the many initiatives offered by The FAS Project, FASD in the Netherlands, an excerpt from the book “Children With FASD: An Insight Into Their Lives” by Allard de Witte and Joost Bos, and words of encouragement and hope. EPISODE RESOURCES -  The FAS Project -  https://fasproject.nl/en/ The FAS Project - Book - "Children With FASD: An Insight Into Their Lives" by Allard de Witte and Joost Bos https://fasproject.nl/en/book/ The FAS Project - Films - https://fasproject.nl/en/films/ The FAS Project - Het Witte Bos Schippersgracht 1-3 1011 TR  Amsterdam  The Netherlands info@fasproject.nl 020-2212960 Facebook - https://www.facebook.com/thefasprojectinternational Instagram - https://www.instagram.com/the_fasproject/ LinkedIn - https://www.linkedin.com/company/het-fas-project/ YouTube - https://www.youtube.com/channel/UC5UVp3YsIILE2yeGISu_z5Q   FASD Hope - https://www.fasdhope.com/ natalie@fasdhope.com Instagram - https://www.instagram.com/fasdhope/ Facebook - https://www.facebook.com/fasdhope1 Twitter - https://twitter.com/fasdhope LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/ Racket - @fasdhope Clubhouse - @natalievecc Check out our  book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!    

    123 - The FASD Forum '22 - NOFASD Australia

    Play Episode Listen Later Mar 31, 2022 19:20


    FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of Parent Advocates with over nineteen years of lived experience.   Episode 123 is a BONUS EPISODE and welcomes back Louise Gray, CEO and Sophie Harrington, COO of NOFASD Australia to announce the first-ever FASD Forum '22 - Virtual FASD Conference. In this episode, Louise and Sophie discuss the presenters, resources, presentations and newest FASD Research offered in this highly accessible and resourceful 2 day conference. Conference attendees will also have the benefit of accessing all presentations for up to 90 days after the end of this event. The FASD Forum '22 - FASD@50 will be held from May 13-14, 2022 AEST  To learn more or to register for this online conference, visit the NOFASD Australia website at - https://www.nofasd.org.au/ NOFASD Australia - Facebook - https://www.facebook.com/NOFASDAustralia Instagram - https://www.instagram.com/nofasd.australia Twitter - https://twitter.com/NOFASDAustralia LinkedIn - https://www.linkedin.com/company/nofasdaustralia/   FASD Hope -    FASD Hope - https://www.fasdhope.com/ natalie@fasdhope.com Instagram - https://www.instagram.com/fasdhope/ Facebook - https://www.facebook.com/fasdhope1 Twitter - https://twitter.com/fasdhope LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/ Racket - @fasdhope Clubhouse - @natalievecc Check out our  book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!  

    ceo australia conference coo forum developmental disabilities fasd fetal alcohol spectrum disorder fasd louise gray
    122 -Explained By Brain FASD Online Training - A Conversation with Dr. Vanessa Spiller

    Play Episode Listen Later Mar 29, 2022 43:56


    FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with other nineteen years of lived experience.   FASD Hope welcomes back Episode 62 Guest, Dr. Vanessa Spiller of Jumpstart Psychology, Author of "Explained By Brain: The FASD Workbook for Parents, Carers and Educators" and Creator of the “Explained By Brain Online FASD Training and Community”. Dr. Vanessa Spiller is a Clinical Psychologist, based in Australia, with over 20 years of clinical experience. She works therapeutically, using a Feedback Informed Approach with adults and young people with families and young people on issues such as anxiety, adjustment to change, trauma, grief and loss. Dr. Spiller also works with families and young people with FASD. Dr. Spiller has also worked in several Australian universities and provides lectures and professional development activities in areas such as professional practice, child / adolescent work and adult psychology and ethics. Dr. Spiller offers the rare trifecta of FASD experience as an FASD Clinician, FASD Educator and FASD Parent Advocate. In this hope-filled, resource-packed episode, Dr. Spiller discusses the following topics:  the work she has been doing since her 2021 FASD Hope episode, her new online, FASD training "Explained By Brain", who can benefit from this online FASD training, the "3 Streams of Content" framework of this online training, benefits of this online training, how to learn more / sign up for this training and her words of hope and encouragement.  The 3 Streams of Content in the "Explained By Brain Online FASD Training are: FASD Information, Complex Behavioral Symptoms and Focus on Parents / Caregivers.   EPISODE RESOURCES -  Dr. Vanessa Spiller - www.jumpstartpsychology.com Explained By Brain Online FASD Training - https://sites.google.com/view/explainedbybrain-startpage/home  The book - "Explained by Brain: The FASD Workbook for Parents, Carers and Educators" by Dr. Vanessa Spiller https://www.amazon.com/Explained-Brain-Workbook-Educators-everything/dp/0995353212/ref=sr_1_1?crid=2NA9E3EKH6293&keywords=Explained+By+Brain+FASD&qid=1648501837&sprefix=explained+by+brain+fasd%2Caps%2C591&sr=8-1   Resources - https://www.jumpstartpsychology.com/EBBdownloadspodcastsvideos2021.html Video -  https://www.youtube.com/watch?v=tK_6Mdnpk5k Instagram - https://www.instagram.com/jumpstartpsychology/ Facebook - https://www.facebook.com/FASD-Explained-By-Brain-resources-101506929127325 LinkedIn - https://www.linkedin.com/in/vanessa-spiller-343a5449/   FASD Hope - https://www.fasdhope.com/ natalie@fasdhope.com Instagram - https://www.instagram.com/fasdhope/ Facebook - https://www.facebook.com/fasdhope1 Twitter - https://twitter.com/fasdhope LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/ Racket - @fasdhope Clubhouse - @natalievecc Check out our  book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!    

    121 - All About FASD - Gratitude, Optimism and FASD with Dr. Jerrod Brown

    Play Episode Listen Later Mar 22, 2022 36:01


    FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.   Episode 121 welcomes back Dr. Jerrod Brown to continue our series within the series “All About FASD- Professional Insights and Perspectives". This month's topic is Gratitude, Optimism and FASD. Jerrod Brown, Ph.D., M.A., M.S., M.S., M.S. is a professor, trainer, researcher and consultant with multiple years of experience teaching collegiate courses. Jerrod is also the founder and CEO of the American Institute for the Advancement of Forensic Studies (AIAFS) and the Editor-in-Chief of Forensic Scholars Today (FST).    In this episode, Jerrod addresses the following topics: exploring gratitude and optimism, barriers of gratitude and optimism in those with FASD (and other brain based diagnoses), benefits of gratitude and optimism (including being a protective factor), modeling gratitude and optimism for individuals with FASD and words of encouragement and hope.    Episode 121 Resources - Dr. Jerrod Brown - jerrod1234brown@live.com American Institute for the Advancement of Forensic Studies (AIAFS) - https://aiafs.com/ Facebook - https://www.facebook.com/AIAFStraining Instagram - https://www.instagram.com/aiafsassoc/ Twitter - https://twitter.com/AIAFS2011 LinkedIn - https://www.linkedin.com/in/aiafs/?miniProfileUrn=urn%3Ali%3Afs_miniProfile%3AACoAABntPzUB2qCg_fmbOMKXQbRSlzI9pSfdRG4   The link for March 25th Webinar, presented by Dr. Jerrod Brown - https://www.aiafs.com/registerls.asp?id=27   https://www.aiafs.com/trainpdfs/Confabulation,%20Suggestibility,%20Gullibility,%20and%20Compliance%20in%20Psycholegal%20Settings%203.22.22.pdf     FASD Hope - https://www.fasdhope.com/ natalie@fasdhope.com Instagram - https://www.instagram.com/fasdhope/ Facebook - https://www.facebook.com/fasdhope1 Twitter - https://twitter.com/fasdhope LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/ Clubhouse - @natalievecc Racket - @fasdhope Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

    120 - We Still Struggle, But It's OK - The Dadcast with John and Natalie Vecchione

    Play Episode Listen Later Mar 19, 2022 29:46


    FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD) , through the lens of parent advocates with over nineteen years of lived experience.   Episode 120 is a BONUS EPISODE of The Dadcast with John and Natalie Vecchione. In this episode, John and Natalie update and get REAL about the struggles (and the hope) in this stage of parenting a young adult with an FASD!   "Fear not, for I am with you; Be not dismayed, for I am your God. I will strengthen you, Yes, I will help you, I will uphold you with My righteous right hand." - Isaiah 41:10   FASD Hope - https://www.fasdhope.com/ natalie@fasdhope.com Instagram - https://www.instagram.com/fasdhope/ Facebook - https://www.facebook.com/fasdhope1 Twitter - https://twitter.com/fasdhope LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/ Racket - @fasdhope Clubhouse - @natalievecc Check out our  book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW! 

    119 - Stronger Together - The Women of FASD Podcasting

    Play Episode Listen Later Mar 19, 2022 36:44


    FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience. In this SPECIAL EPISODE, the Women of FASD Podcasting (missing Jessica Rutherford) reunite for another STRONGER TOGETHER discussion. Happy One Year Anniversary to Robbie Seale of FASD Family Life Podcast! Robbie, in Alberta, Canada hosts this episode with Clare Devanney-Glynn of Spotlight on FASD (UK) & Natalie Vecchione (US). The Women of FASD Podcasting get REAL about their lives, families, grief and "plot twists" in being moms of kids / teens / young adults with FASD. #spaceandgrace   EPISODE RESOURCES -  Podcasts: Robbie Seale - FASD Family Life Podcast (based in Canada), Clare Devanney-Glynn & Jessica Rutherford- Spotlight on FASD (UK) Both podcasts are available anywhere you find your podcasts!  FASD Family Life -  Facebook - https://www.facebook.com/robbie.seale.1 Instagram - https://instagram.com/robbie.seale/ Twitter - https://twitter.com/robbieseale9?s=21   Spotlight on FASD - Facebook - https://www.facebook.com/Spotlightonfasdpodcast/ Instagram- https://instagram.com/spotlightonfasd/ Twitter - https://twitter.com/spotlightonfasd?s=21   FASD Hope - https://www.fasdhope.com/ natalie@fasdhope.com Instagram - https://www.instagram.com/fasdhope/ Facebook - https://www.facebook.com/fasdhope1 Twitter - https://twitter.com/fasdhope LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/ Racket - @fasdhope Clubhouse - @natalievecc Check out our  book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!    

    118 - Wired Differently - A Conversation with Gilberto Spencer

    Play Episode Listen Later Mar 15, 2022 59:44


    FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience. Episode 118 highlights the AMAZING ADVOCACY of Gilberto Spencer! Gilberto is a serial entrepreneur, Life & Brain Coach, FASD Self-Advocate & Mentor. Gilberto is a neurodivergent who wasn't aware of it until 2020 when he was diagnosed with FASD, ADHD, chronic stress, anxiety and depression amongst other conditions at age 33. “After trying all the available and traditional routes, psychiatrists, psychologists and counsellors and in a desperate attempt to improve and don't give up on himself he came across Life Coaching and after seeing the extraordinary and life-changing results he decided to become a Life & Brain Coach himself to help others struggling with those conditions.” (Source- Wired Differently)   In this HIGHLY MOTIVATIONAL episode, Gilberto shares his FASD journey, receiving his FASD diagnosis as an adult, his passion for FASD advocacy and helping others with FASD through his podcast / life coaching and his motivational words of encouragement and hope.    EPISODE RESOURCES -    Gilberto Spencer, Wired Differently Life and Brain Coaching -  https://www.wired-differently.com/   Gilberto's Podcast - "Wired Differently: All About Brain Function & Dysfunction, Neurodiversity + FASD" is available anywhere you find your podcasts.   https://music.amazon.com/podcasts/be0c7a3e-2b34-4755-92b4-f8b13e92235d/wired-differently-all-about-brain-function-dysfunction-neurodiversity-fasd     Facebook -  https://www.facebook.com/WiredxDifferently Instagram - https://www.instagram.com/wiredxdifferently_/ Twitter -  https://twitter.com/WiredDifferentx    and  https://twitter.com/GilbertoSpencer LinkedIn - https://www.linkedin.com/in/gilbertospencer/   FASD Hope - https://www.fasdhope.com/ natalie@fasdhope.com Instagram - https://www.instagram.com/fasdhope/ Facebook - https://www.facebook.com/fasdhope1 Twitter - https://twitter.com/fasdhope LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/ Racket - @fasdhope Clubhouse - @natalievecc Check out our  book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!  

    117 - FASD Hub Scotland - A Conversation with Aliy Brown

    Play Episode Listen Later Mar 8, 2022 25:40


    FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.    Episode 117 highlights Aliy Brown and her amazing #fasdadvocacy work through FASD Hub Scotland. Aliy Brown is the FASD Project Manager of FASD Hub Scotland and FASD Service Lead of Adoption UK. Aliy is an adoptive parent to three young people, one of whom has an FASD diagnosis, and Aliy understands the realities of supporting and parenting individuals with a history of PAE and FASD.  Aliy has a background in project management within the NHS and central government, is a Chartered Manager, and has previously worked in the third sector at home & overseas.  Aliy graduated from Newcastle University as a mature student in 1999 with a B.A. Hons in Social Policy and has worked for Adoption UK Scotland since 2015.  In her spare time, she likes being outdoors, spending time on adventures in her family's motorhome, and enjoying creative crafts.    In this inspirational episode, Aliy shares: her family's adoption & FASD stories, the comprehensive and wonderful resources offered by FASD Hub Scotland and her words of hope & inspiration.   EPISODE RESOURCES -   FASD Hub Scotland - https://www.adoptionuk.org/fasd-hub   FASD Hub Scotland helpline is open Tuesday-Friday, 10am to 2.30pm 0300 666 0006 outside these times people can leave an answer phone message or alternatively they can email the FASD Hub team at fasdhub.scotland@adoptionuk.org.uk People can access a wide range of digital resources, events FASD Hub Scotland has hosted and previous Wednesday Webinars and Webinar events by visiting their YouTube channel - https://www.youtube.com/channel/UC_JeE1pfMVdVxu3hKNXuCEw?view_as=subscriber Specific FASD free factsheets and education resources are available here - https://www.adoptionuk.org/factsheets-fasd During April, FASD Hub Scotland will also be launching a number of new initiative with their brand new team of FASD Hub Volunteers, who are currently going through induction and getting themselves set up.  People should keep a look out on social media for more updates of activities coming to their area. Facebook - https://www.facebook.com/FASDHubScot Instagram - https://www.instagram.com/fasdhubscotland/ Twitter - https://twitter.com/FasdhubScotland   FASD Hope - https://www.fasdhope.com/ natalie@fasdhope.com Instagram - https://www.instagram.com/fasdhope/ Facebook - https://www.facebook.com/fasdhope1 Twitter - https://twitter.com/fasdhope LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/ Racket - @fasdhope Clubhouse - @natalievecc Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

    116 - Three Generations of FASD Exposure - A Conversation with Dr. Larry Burd

    Play Episode Listen Later Feb 28, 2022 33:46


    FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.    Episode 116 highlights the work, contributions and legacy of Dr. Larry Burd of the University of North Dakota. Larry Burd received his PhD from the University of Manitoba Health Science Center in Winnipeg, Manitoba in Community Health Sciences. Dr. Burd currently is a professor in the Department of Pediatrics at the University of North Dakota School of Medicine and Director of the North Dakota Fetal Alcohol Syndrome Center and FAS Clinic. Dr. Burd has been with the Pediatric Therapy Program for 40 years where he has evaluated over 18,000 children with birth defects, developmental disorders and mental illness. Dr. Burd has conducted research in 41 countries around the world. He has ongoing longitudinal studies of linked cohorts of subjects with Tourette syndrome, autism, fetal alcohol syndrome and infant mortality risk that are in their 28th consecutive year of data collection. He published over 220 professional papers on topics dealing with development and behavior in children and adolescents. He has had clinics for children with developmental disabilities and mental health disorders on Tribal Nations for over 30 years.   In this enlightening and highly insightful episode, Dr. Burd discusses the following topics: Dr. Burd's legacy of work in the FASD field, his developing population-based studies in FASD, how use / misuse during pregnancy affects 3 Generations, important facts and statistics about FASD, his findings and words of encouragement.   Episode Resources - UND FASD Center    https://med.und.edu/fetal-alcohol-syndrome-center/   http://www.online-clinic.com/   Dr. Larry Burd -  larry.burd@und.edu   FASD Hope - https://www.fasdhope.com/ natalie@fasdhope.com Instagram - https://www.instagram.com/fasdhope/ Facebook - https://www.facebook.com/fasdhope1 Twitter - https://twitter.com/fasdhope LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/ Racket - @fasdhope Clubhouse - @natalievecc Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

    115 - SPECIAL EPISODE - When The World Doesn't Make Sense - A Conversation with Sandra Flach

    Play Episode Listen Later Feb 25, 2022 35:56


    FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience. This is a Special Episode focusing on Ukraine, the act of war against Ukraine and how the adoption / FASD community has such strong ties with Ukraine.  Sandra Flach is a mom of 8 children, 5 through adoption and 2 who are diagnosed with a Fetal Alcohol Spectrum Disorder (FASD). 4 of her children are from Ukraine. She encourages and equips foster and adoptive moms through her weekly "Orphans No More" podcast. Sandra is the co-founder of Justice for Orphans and serves as the Area Director for Care Portal. Sandra and her husband Wayne have been married for 34 years. They reside in upstate New York, where they love to spend time with their 5 precious grandchildren. In this INSPIRATIONAL episode, Sandra and Natalie discuss the acts of war committed against Ukraine, Sandra's close ties with Ukraine as the mom of 4 (now young adults / teens) from Ukraine, how we can serve and pray for those in Ukraine and her words of faith and hope.   EPISODE RESOURCES - Sandra Flach - https://www.sandraflach.com/ Sandra Flach's New Book "Orphans No More: A Journey Back to the Father" https://www.amazon.com/Orphans-No-More-Journey-Father-ebook/dp/B095QFN7X7/ref=sr_1_3?crid=E4UWS4TCFMZY&dchild=1&keywords=orphans+no+more&qid=1622412192&s=books&sprefix=orphans+no+more%2Caps%2C190&sr=1-3 Justice for Orphans -   https://www.justicefororphansny.org/ The "Orphans No More" Podcast is available anywhere you find your podcasts.   FASD Hope - https://www.fasdhope.com/ natalie@fasdhope.com Instagram - https://www.instagram.com/fasdhope/ Facebook - https://www.facebook.com/fasdhope1 Twitter - https://twitter.com/fasdhope LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/ Racket - @fasdhope Clubhouse - @natalievecc Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!  

    114 - Lessons From Forensic Work - A Conversation with Dr. Natalie Novick Brown

    Play Episode Listen Later Feb 22, 2022 34:48


    FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience. FASD Hope welcomes Dr. Natalie Novick Brown, a psychologist with a nationwide forensic practice , who is based in the Seattle/Tacoma area of Washington State. Dr. Brown is the editor of "Evaluating Fetal Alcohol Spectrum Disorders in the Forensic Context: A Manual for Mental Health Practice". Formally trained in Fetal Alcohol Spectrum Disorders and Forensic Investigation in Sexual Offense and Parenting Matters as well as Clinical Psychology,  Dr. Brown is certified by the Association of State and Provincial Licensing Boards and licensed as a psychologist in Washington, Florida and Alaska. In this enlightening and extremely insightful episode, Dr. Brown discusses the following: how she became involved in FASD clinical work, what led her to focus on forensic training & FASD, her book "Evaluating Fetal Alcohol Spectrum Disorders in the Forensic Context", important takeaways from this book and her words of encouragement and hope for those in the FASD community.    EPISODE RESOURCES - "Evaluating Fetal Alcohol Spectrum Disorders in the Forensic Context: A Manual for Mental Health Practice" , Edited by Dr. Natalie Novick Brown (Springer, 2021). https://link.springer.com/book/10.1007/978-3-030-73628-6 Dr. Brown mentioned Kay Kelly of University of Washington https://adai.uw.edu/staff_members/kay-kelly/ You can reach Dr. Brown at drnataliebrown@gmail.com FASD Hope - https://www.fasdhope.com/ natalie@fasdhope.com Instagram - https://www.instagram.com/fasdhope/ Facebook - https://www.facebook.com/fasdhope1 Twitter - https://twitter.com/fasdhope LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/ Racket - @fasdhope Clubhouse - @natalievecc Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!  

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