Lichen Sclerosus Podcast

Are you living with Lichen Sclerosus? This podcast episode dives into the Wholistic Healing Summit, a patient-focused virtual event hosted by the Lichen Sclerosus Support Network (LSSN). LSSN's Kathy shares details about the summit's comprehensive program, featuring leading medical experts, sessions on intimacy and self-esteem, and practical advice for daily living. Learn about the different ticket options and how this summit can provide education, support, and community for those affected by LS.Get your ticket today! - https://lssupportnetwork.org/whsGot questions? Email us at summit@lssupportnetwork.org

Episode Description:Welcome to the Lichen Sclerosus Podcast brought to you by the Lichen Sclerosus Support Network. I'm your host, Kathy, and today we're excited to bring you a conversation with an amazing researcher, Leia Mitchell. If you've listened before, you might recognize her from past episodes. This time, we're diving into a new possible treatment for Lichen Sclerosus.What You'll Learn in This Episode:Insights into two groundbreaking studies on silicone-based treatments for Lichen Sclerosus.The science behind silicone's effects on collagen production and skin rejuvenation.What makes this new treatment non-steroidal and why that matters.Eligibility requirements and what participation in the study entails.Special Guest:Meet Leia Mitchell, a passionate and knowledgeable physician assistant with extensive experience in Lichen Sclerosus treatment and clinical research. Her expertise and dedication make her a valuable voice in the LS space.Key Moments:1:49 – Discussion of two studies: one completed and one actively recruiting participants in Florida, DC, and NYC.3:35 – Leia explains how silicone aids collagen production and benefits skin conditions, including burn victims.5:21 – Application process: The silicone gel is easy to use—dab and rub gently over affected areas.6:26 – Leia highlights the need for effective LS treatments and shares how she became involved in the study.7:14 – The appeal of non-steroidal treatments and how Leia encountered this promising solution.9:24 – Study requirements: participants must have an active LS diagnosis, abstain from steroids or other topicals, and undergo pre- and post-study biopsies.13:10 – The study is initially limited to five participants, but a larger trial may follow pending positive results.15:09 – Leia shares her excitement for the study's potential outcomes and outlines the 10-week process, which includes subjective results announced after publication.34:01 – Leia discusses the goal of FDA approval to make the treatment accessible and affordable for patients through insurance coverage.Connect with Us:Visit the Lichen Sclerosus Support Network for more resources: lssupportnetwork.orgGet more information on the study at https://clinicaltrials.gov/study/NCT06662942?cond=stratamgt&rank=2or email the CVVD at research1.cvvd@gmail.com

Join Kathy and Sienna as they introduce the "Unstoppable You" workshop, designed specifically for young adults with lichen sclerosus (LS). They'll discuss the inspiration behind the workshop, its unique features, and how it can empower young people to thrive with LS.Key Takeaways:The "Unstoppable You" workshop is a 5-week program created to help young adults navigate the challenges of LS with confidence.The workshop will cover topics such as communicating about LS, redefining intimacy, embracing pleasure, and building self-confidence.Participants will have access to expert guidance, interactive sessions, a private online community, and evidence-based education.The workshop starts on February 17th and runs until April 7th, with the community remaining open through May.Early bird pricing is available from February 3rd to 10th.Call to Action:Visit https://lssupportnetwork.org/unstoppable to learn more and register for the "Unstoppable You" workshop.Join the LSSN email list to stay updated on future events and resources: lssupportnetwork.org/subscribeChapter Markers:00:00 Welcome to the Lichen Sclerosus Podcast00:38 Meet Sienna: Chief Fundraising Officer01:48 Sienna's Journey with Lichen Sclerosus03:03 Creating a Workshop for Young People04:25 Workshop Structure and Goals07:56 Workshop Sessions Overview14:59 Pricing and Registration Details18:13 Final Thoughts and EncouragementConnect with LSSN:Website: lssupportnetwork.orgEmail: support@lssupportnetwork.org

Join us for an insightful conversation with Dr. Jill Krapf, a leading expert in vulvar lichen sclerosus (LS), as we discuss the challenges and opportunities in LS care and introduce the Provider Continuous Education Program (PCEP).Why Provider Education Matters:LS is often misdiagnosed or diagnosed late, leading to years of unnecessary suffering for patients. Many healthcare providers lack the knowledge and training to properly diagnose and manage LS. The PCEP will equip providers with the tools and resources they need to provide effective, patient-centered LS care. How the PCEP Will Make a Difference:The PCEP will provide comprehensive education on LS, covering diagnosis, treatment, and patient communication. It will feature expert-led training by experienced LS specialists. It will focus on evidence-based practices and patient-centered care. It will create a network of knowledgeable healthcare providers who can support each other and share best practices. Call to Action:Support the PCEP and help us transform the future of LS care. Your donation will directly impact the lives of those affected by this often-misunderstood condition.Donate to LSSN's Campaign: https://lssupportnetwork.org/givingtuesdayAdditional Resources:Learn more about LSSN's programs and resources: https://lssupportnetwork.orgJoin LSSN's online community: https://lssupportnetwork.org/membershipAttend LSSN's Giving Tuesday live events: https://lssupportnetwork.org/givingtuesdayThank you for listening and for your support!

Join us for a special Giving Tuesday episode where we discuss the importance of supporting the Lichen Sclerosus Support Network (LSSN) and their mission to end the misdiagnosis and suffering caused by lichen sclerosus (LS).In this episode, you'll learn about:The challenges of living with LS and the impact of misdiagnosis. The importance of patient education and support in managing LS. The LSSN Provider Continuous Education Program (PCEP) and how it will improve healthcare provider knowledge and patient care.How your donations can help LSSN continue to provide vital resources and support to the LS community.Support LSSN this Giving Tuesday and help us break the cycle of suffering for people with LS. Your generosity can make a real difference in the lives of those affected by this often misunderstood condition.Resources and Links:Donate and Attend LSSN's Giving Tuesday Event: https://lssupportnetwork.org/givingtuesdayHelp LSSN raise money without disclosing your diagnosis: https://docs.google.com/document/d/16hoqesjqg_n68QGkGQPHAh0EYrZME1CH0NfVGNMVksQ/copy?usp=sharingLearn more about LSSN's programs and resources: https://lssupportnetworkJoin LSSN's online community: https://lssupportnetwork.org/membershipBecome an LSSN volunteer: https://lssupportnetwork.org/volunteerThank you for listening and for your support!

If you're feeling the weight of unresolved issues in your intimate relationship, then you are not alone! Couples often struggle to communicate openly about sex and intimacy, leading to frustration and distance instead of connection. But what if there's a way to enhance your communication and connection, even in the midst of challenges? Let's dive into the journey of a couple navigating the complexities of long-term relationships and discover the transformative power of open dialogue and shared experiences.In this episode, you will be able to:Gain insights into managing pelvic floor dysfunction in individuals dealing with Lichen Sclerosus for better everyday comfort and confidence.Explore strategies for maintaining sexual intimacy while managing Lichen Sclerosus to nurture connection and closeness with your partner.Learn how to provide meaningful support to partners coping with Lichen Sclerosus, fostering empathy and understanding in the relationship.Enhance communication about sexual health in long-term relationships, fostering a deeper emotional and physical connection with your partner.My special guests are Annie and MichealAnnie and Michael bring a unique perspective to the conversation as a couple navigating the challenges of living with Lichen Sclerosus. Annie's personal journey with LS, from dealing with misdiagnosis to undergoing a biopsy, provides a firsthand understanding of the physical and emotional toll this condition can take. Michael, as a supportive partner, shares his experiences of navigating the impact of LS on their intimate relationship and the communication challenges they faced during this time. Their honest and open dialogue sheds light on the complexities of managing LS within a long-term relationship, making their insights valuable for others in similar situations.The key moments in this episode are:00:00:00 - Introducing Annie and Michael 00:02:22 - Annie's LS Journey 00:08:25 - Biopsy Process and Support 00:13:02 - Communication and Relationship 00:15:55 - Medical Diagnosis and Initial Concerns 00:17:43 - Age and Diagnosis 00:19:06 - Diagnosis Confirmation and Frustrations 00:23:26 - Partner's Involvement and Education 00:26:35 - Medication Side Effects and Treatment Adjustments 00:30:20 - Advocating for Yourself 00:32:30 - Importance of Education for Doctors 00:36:06 - Impact on Relationships 00:39:37 - Transformation through Communication 00:43:47 - Coping with Stress and Loss 00:45:05 - The Importance of Communication in Relationships 00:47:17 - Broadening Perspectives on Intimacy and Sex 00:51:27 - Seeking Support for Partners and Caregivers 00:55:43 - Journey to Healing with Dr. Bob 00:58:52 - Excitement for the upcoming summit 00:59:27 - Doctor Bab's thorough care 01:00:53 - Virtual visits with Doctor Bab 01:01:37 - Open communication about sex 01:02:38 - Summit topics and invitation Register for the Holistic Healing Summit from May 13th to 17th at lssupportnetwork.org to gain valuable insights and information on intimacy, communication, sexual intimacy, and emotional intimacy in the context of Lichen Sclerosus.Explore the book Sex Talks: The Five Conversations That Will Transform Your Love Life by Vanessa Marin for valuable guidance on enhancing intimacy and communication in your relationship. https://www.amazon.com/Sex-Talks-Five-Conversations-Transform/dp/1668000016Connect with Dr. Babb, a vulvar specialist, for thorough examinations and expert guidance on managing Lichen Sclerosus. Virtual visits are also available for those who are not local. https://havencenter.comExplore the SweetSpot Labs body wash and other products recommended by Annie for gentle care of the skin, especially for those with Lichen...

Bonus Alert until April 28: Check out the bonus 14 video replays from past summits that come with the Wholistic Healing Summit All-Access pass. https://lssupportnetwork.org/whsJoin us for this informative panel discussion on lichen sclerosis and sexual health. Hosted by Kathy Ruiz-Carter, we have a talented group of experts: patient advocate Jaclyn Lanthier, gynecologist Dr. Suzanne Weber, and pelvic health physical therapist Dr. Mamawah Bourque.We cover key topics like LS treatment and management, tips for engaging in sexual activity, managing symptoms during menstruation, considerations around pregnancy, and more. The panel shares practical guidance grounded in both clinical expertise and lived experience. You'll discover helpful insights on using steroids, alternate therapies, dilator work, lubricants, vulvar care, pelvic floor health, open communication with partners, and listening to your body's needs. We also talk about emerging research on LS progression and hormonal connections. Whether newly diagnosed or a long-time LSer, you'll find empowering takeaways to improve your sexual health and approach LS management more holistically. We hope you feel encouraged in your journey toward remission and pain-free intimacy. Let us know in the comments what resonated most or what additional questions you have! And don't forget to check out the bonus 14 video replays from past summits that come with the Wholistic Healing Summit All-Access pass. https://lssupportnetwork.org/whsIn this episode, you will be able to:Understand how to manage lichen sclerosus during pregnancy for a smoother journey.Discover practical tips for maintaining sexual health while dealing with vulvar lichen sclerosus.Learn effective strategies for comfortable bike riding despite lichen sclerosus symptoms.Explore the benefits of pelvic floor therapy in managing lichen sclerosus symptoms.Uncover the hormonal effects on lichen sclerosus symptoms and how to mitigate them.My special guest is Jaclyn Lanthier, Suzanne Weber, and Mamawah Bourque.The key moments in this episode are:00:00:00 - Introducing the National Vova Awareness Day event. 00:03:24 - LS progression and management. 00:07:33 - Natural and maintenance options for LS treatment. 00:12:07 - Treating different areas of the genitals. 00:15:26 - Personalized application of treatment.

Topics:What is the LSSN Wholistic Healing Summit?Importance of addressing relationships affected by Lichen Sclerosus (LS)Summit focus: Partners, Caregivers, and DisclosureSessions for patients, partners, and caregiversWellbeing activities for stress managementOpportunities to connect with other attendeesKey PointsLSSN is a non-profit patient organization providing education and support for those with LS.LS impacts all aspects of life, including relationships.The summit helps patients, partners, and caregivers discuss LS, manage sexual health, and build intimacy.Free, Value, and All Access ticket options are available.Time Stamps00:00:00 - Introduction to Holistic Healing Summit 00:02:36 - Challenges in Talking About LS 00:04:38 - Disclosing LS to Partners 00:08:45 - Supporting Caregivers of LS Patients 00:10:07 - Managing LS Symptoms and Well-being 00:15:18 - Ticket Options for the Summit 00:16:09 - All Access Pass Benefits 00:17:18 - Partnership Meetup 00:18:48 - Exclusive Summit Benefits 00:20:55 - Summit Evolution and Community Impact Mentioned in this episode:Reconnecting and Healing with the 2024 Wholistic Healing SummitDoes Lichen Sclerosus make you feel isolated or affect your relationships? You're not alone. The Lichen Sclerosus Support Network's Wholistic Healing Summit is here to help you find connection, support, and healing. This free, virtual event focuses on "Reconnecting & Healing." Gain expert knowledge on managing LS; learn strategies for communicating with your family, friends, and partner; get tools to improve the intimacy in your relationship; and discover tips to prioritize your well-being. Join empowering sessions, connect with others who understand, and learn from top medical professionals. Secure your spot today. Don't miss out—visit http://www.lssupportnetwork.com/whs and register today. Let's start this journey to greater understanding, connection, and healing together!

Hey friend! I recently had the pleasure of chatting with Dr. Melissa Mauskar, a true rockstar in the world of vulvar health research. She illuminated some fascinating new findings about the hormone and microbiome landscapes in lichen sclerosus. I walked away feeling so hopeful about how this work might improve patient care down the road!

Get ready for a heart-pounding year-end review of the Lichen Sclerosis Support Network's incredible work. From informative videos to virtual meetups, they're empowering LS warriors like me. But just when everything seems perfect, a shocking revelation threatens to unravel all their progress. Will they overcome this unexpected obstacle? Find out on the Lichen Sclerosus Podcast! In this episode, you will be able to: Discover the latest updates and initiatives from the Lichen Sclerosis Support Network (LSSN) in their year-end review. Explore diet and lifestyle treatment resources that can help manage Lichen Sclerosis (LS) and improve your overall well-being. Dive into the digital pages of LS Zine, a magazine dedicated to providing valuable insights and support for individuals living with LS. Learn about the whole-body approach of the Wholistic Healing Summit and what next year's summit will focus on. Learn about the other exciting projects and initiatives undertaken by the Lichen Sclerosis Support Network (LSSN) to support individuals dealing with LS. The key moments in this episode are: 00:00:11 - Introduction 00:01:10 - Mission of LSSN 00:02:40 - Giving Tuesday 00:11:47 - What's New On The Website 00:14:42 Blog Posts 00:18:08 - Video Posts 00:22:00 - LSSN YouTube Channel  00:26:07 Virtual Meetups 00:30:56 LS Brochures 00:33:49 LSSN Shop 00:36:57 Long Form Content 00:41:04 LS Zine/LSSN's Digital Magazine 00:43:09 LSSN Board/Medical Advisory Board 00:46:18 Wholistic Healing Summit 00:47:50 LSSN Mini Summit: Vulvovaginal Conditions 00:50:02 Who have we partnered with? 00:57:40 - Reflecting on Accomplishments and Future Goals Check out all the ways Lichen Sclerosus Support Network can help you at lssupportnetwork.org. Visit our website at Lichen Sclerosus Support Network to access our resources and information. https://lssupportnetwork.org Check out our blog for over 42 informative posts on Lichen Sclerosus. https://lssupportnetwork.org/blog Check out our 32 video educational posts on everything LS related. https://lssupportnetwork.org/videos Attend our virtual Meetups to connect with others and learn more about Lichen Sclerosus. https://lssupportnetwork.org/connect Find a healthcare provider in our directory who specializes in Lichen Sclerosus. https://lssupportnetwork.org/providers Browse our brochures for helpful information on managing Lichen Sclerosus. https://lssupportnetwork.org/brochure Shop at our online store for Lichen Sclerosus-related products and merchandise. https://lssupportnetwork.org/shop Support our education fund by making a donation on Giving Tuesday or becoming a monthly donor. https://lssupportnetwork.org/givingtuesday Stay updated on news and events at LSSN by subscribing to our newsletters. https://lssupportnetwork.org/subscribe Contact with Functional Nutrition Therapist Heather Cooan on her website at https://heathercooan.com Check out our boards at https://lssupportnetwork.org/lssn-board Get a copy of our digital magazine at https://lszine.lssupportnetwork.org   https://lssupportnetwork.org/ https://www.youtube.com/https://www.youtube.com/channel/UCQXU-nhfnn-nScR_5VyUdCQ https://www.linkedin.com/in/lssn https://www.facebook.com/lichensclerosussupportnetwork https://instagram.com/lichensclerosussupportnetwork

Have you heard about the LSSN Mini Summit: Vulvovaginal Conditions? It's our 3-day, 100% virtual event presented by medical experts on rarely discussed conditions, such as lichen sclerosus. You may be saying, I already have LS. Why do I need to know about other conditions? Or I don't want to know about anything else. But the thing is, this is VERY important to your LS journey! In this episode, I will explain why you do not want to miss this summit, especially if you already have a vulvovaginal condition. We're going to talk about:

In this episode, you will be able to: Explore the impact of holistic methods on pelvic health and wellness. Harness the strength of your pelvic area to alleviate pain. Foster a nurturing environment for individuals coping with pelvic pain. Unlock a fulfilling life through empowerment for those with chronic conditions. My special guest is Penny Petersson Penny reaches her audience through her Instagram account, @wellbeingbypenny, where she spreads positivity and humor, despite her own pelvic health challenges. Her unique way of turning the difficult into digestible content has made her a true inspiration in the pelvic pain community. Penny's Resources: Follow her on Instagram at https://www.instagram.com/wellbeing.by.penny Listen to Penny's new podcast The Pelvic Power Podcast. Join her membership the Pelvic Health Yoga Membership today, at https://well-being-by-penny-s-school.teachable.com/?affcode=848302_qg_-pve8 and use code 'JACLYN' for a 7-day free trial and 30% off your first month.  Connect with us: Instagram: https://www.instagram.com/lichensclerosussupportnetwork/ YouTube: https://www.youtube.com/channel/@lichensclerosussupportnetwork Facebook: https://www.facebook.com/lichensclerosussupportnetwork Website: https://lssupportnetwork.org/

In this podcast, Sophie Reese, an English researcher, discusses her work on the project Living with Vulva LS, a Mixed Method Study. She mentions the development of a checklist of diagnostic criteria to help health professionals diagnose LS accurately and quickly. Sophie highlights the challenges in recruiting participants for research studies, particularly ethical issues, and the responsibility of researchers to publish their findings to create real-world changes. The interviewee emphasizes the need for inclusivity in medical research, communicating with different groups, and improving research involvement among patients. She invites patients to reach out to providers or patient groups to learn about research opportunities and get involved in research organizations. In this episode, you will be able to: Delve into the challenges faced in Lichen Sclerosus research and the consequences for affected individuals. Realize the value of spreading awareness about vulval and vaginal conditions to empower women. Grasp the essential role education and accurate diagnosis play in successfully treating Lichen Sclerosus. Investigate the impact of diverse and inclusive language in Lichen Sclerosus research on patient well-being. Recognize the importance of increasing healthcare access and improving treatments for Lichen Sclerosus patients. Connect with Sophie Rees on Instagram at https://www.instagram.com/vulva_resea... Core outcome domains for lichen sclerosus: a CORALS initiative consensus statement (https://academic.oup.com/bjd/article/...) Connect with us: Instagram: https://www.instagram.com/lichenscler... YouTube: https://www.youtube.com/channel/@lich... Website: https://lssupportnetwork.org/ Loved this episode? Make sure to subscribe.

When I started the podcast, I never imagined it would grow into something so much more - the Lichen Sclerosus Support Network and their annual (W)holistic Healing Summit. Now, every year, we strive to make a brighter tomorrow for those facing the same struggle I once did. But what does the future hold for this amazing network? Learn more and get your pass today at https://whhs.lssupportnetwork.org/ In this episode, you will be able to: Experience the transformational effects of holistic healing on lichen sclerosus patients at the inspiring summit. Dive into the world of comprehensive resources to fill the information gap and learn more. Elevate your network by participating in interactive sessions and listening to expert talks within the community. Unfold necessary discussions on sexual health, pregnancy, and menopause related to lichen sclerosus. Choose from free, basic, or all-access passes to get different perk levels “It's important that you guys get that information in a way that you can understand.” The resources mentioned in this episode are: Sign up for the (W)holistic Healing Summit starting on May 8th by visiting whsupportnetwork.org or clicking the link in the description. Choose a pass option: Free Pass (access to live sessions), Basic Pass ($25, access to recordings for 30 days), or All Access Pass ($100, lifetime access to keyword searchable recordings, PDFs, notes, worksheets, and exclusive sessions). Attend the live sessions, including internship as a vulvar specialist with Dr. Jill Krapf, pain management with Dr. Corey Babb, pelvic health physical therapy, sex education, pleasure practices, and talks on pregnancy and menopause. After each session, participate in community lounge rooms to connect with others and share experiences. Visit the exhibitors to learn about products and resources to help with lichen sclerosus. Upgrade your pass anytime if you want more access to the event content. Leave any questions in the comments section of the video for further clarification. The key moments in this episode are: 00:00:00 - Introduction, 00:02:14 - The Holistic Healing Summit, 00:06:21 - Expert Speakers, 00:08:32 - Passes and Benefits, 00:10:24 - Conclusion, Learn more and get your pass today at https://whhs.lssupportnetwork.org/ Connect with us: Instagram: https://www.instagram.com/lichensclerosussupportnetwork/ YouTube: https://www.youtube.com/channel/@lichensclerosussupportnetwork Facebook: https://www.facebook.com/lichensclerosussupportnetwork Website: https://lssupportnetwork.org/ Loved this episode? Hit the like button and make sure to subscribe.

Join me in the second part of this conversation with Dr. Jill Krapf, LS specialist; researcher; author; and educator, about her research review, "Topical Corticosteroids in the Treatment of Vulvar Lichen Sclerosus: A Review of Pharmacokinetics and Recommended Dosing Frequencies." When evaluating treatments for lichen sclerosus, one must consider all variables involved for optimal application. In this review article, the authors explore the science of the skin and the effects of inflammation, as well as the absorption of the medication. However, with limited research guiding us, the answer remains scattered and uncertain, leaving us with more questions than answers. In this episode, you will be able to: Discover the effectiveness of topical steroid treatments in managing Lichen Sclerosus. Understand skin absorption concerns and dosages when using steroid treatments. Uncover truths about the myths surrounding the long-term side effects of steroid use. Grasp the significance of adhering to proper steroid application guidelines. Delve into alternative treatment options beyond steroid usage for Lichen Sclerosis. My special guest is Dr. Jill Krapf Dr. Jill Krapf is a renowned researcher, author, vulvar specialist, and educator with a passion for helping patients suffering from Lichen Sclerosus. Her extensive knowledge and experience in the field make her an invaluable resource for those seeking guidance on steroid treatments for Lichen Sclerosus. Dr. Krapf's dedication to uncovering the most effective methods of treatment has led her to conduct in-depth research on the impact of steroids on Lichen Sclerosus patients. With a wealth of experience and expertise, Dr. Krapf is an ideal guest to shed light on this complex topic and provide much-needed answers to those affected by this condition. The key moments in this episode are: 00:00:00 - Introduction, 00:02:26 - Types of Research, 00:07:45 - Purpose of the Review, 00:13:08 - Absorption of Topical Steroids, 00:15:57 - Understanding Lichen Sclerosis Skin, 00:17:42 - Interpreting the Effects of Inflammation on Skin, 00:19:27 - Burnt Out Lichen Sclerosis and Hyperpigmentation, 00:22:05 - Risks of Topical Steroids, 00:25:48 - Thinning of the Skin, 00:31:57 - Misuse of Steroids, 00:33:23 - Side Effects of Steroid Use, 00:36:02 - Tapering Medications, 00:37:37 - Current Steroid Use Guidelines, 00:39:32 - CO2 Laser and Steroid Injections, 00:43:05 - Conclusion, Check out all the ways Lichen Sclerosus Support Network can help you at lssupportnetwork.org. Resources: Vulvar Lichen Sclerosus: Current Perspectives  https://www.vulvodynia.com/assets/files/ijwh-191200-vulvar-lichen-sclerosus-current-perspectives.pdf Topical Corticosteroids in the Treatment of Vulvar Lichen Sclerosus: A Review of Pharmacokinetics and Recommended Dosing Frequencies https://vulvodynia.com/assets/files/Lichen-Sclerosus.pdf Center for Vulvovaginal Disorder http://cvvd.org LSSN Blogs: How to Apply Topical Steroid Treatment for Lichen Sclerosus Correctly https://lssupportnetwork.org/applyproper  Lichen Sclerosus Treatment Series Part 1: Steroids  https://lssupportnetwork.org/steroids1  Lichen Sclerosus Treatment Series Part 2: Steroids  https://lssupportnetwork.org/steroids2 LSSN Video: Unraveling the Mystery of Lichen Sclerosus Treatment with Dr. Jill Krapf https://www.youtube.com/watch?v=NtFse-rcRwI How to Apply Topical Steroid Treatment for Lichen Sclerosus Correctly https://lssupportnetwork.org/drjill Connect with us: Instagram: https://www.instagram.com/lichensclerosussupportnetwork/ Facebook: https://www.facebook.com/lichensclerosussupportnetwork/ Website: https://lssupportnetwork.org/ Loved this episode? Make a donation to help us create new content. https://lssupportnetwork.org/donate

Has lichen sclerosus changed your sex life? Did you lose your self-confidence? Do you feel less at home in your body? Has your sexual identity been destroyed? Is your libido nonexistent? Like you have no desire for sex and intimacy? Here's the thing. You are not alone! What if we had a way to turn it around? If you're ready to get your sexy back, you need to watch this video and go to https://lssupportnetwork.org/sexyback We spent months designing a unique program for folks with lichen sclerosus with chronic illness, sex educator Shauna Farabaugh. A one a kind of life-changing experience for our community. And you do not want to miss it. We're only accepting the first 15 people into the program. By attending the live classes, doing the practices, and interacting with the community, you will: Increase your libido and desire Learn how to communicate sexual desires and limits Discover a new view of what being sexual means Appreciate your new sexual being Love and accept who you are And so much more! Sex is a learnable skill. Take the first steps towards your sexual rebirth today, and get ready to get your sexy back! Click the link below to see program specifics and sign up in time for our early bird special, April 3-9, 2023. https://lssupportnetwork.org/sexyback  

Join me as I talk to Dr. Jill Krapf, LS specialist; researcher; author; and educator, about all things steroids. What does it do to the skin? Why do we need it? And she answers some frequently heard steroid concerns. If you're on the fence about or want to learn more about steroids, this is the episode for you. In this video, you will learn: 1. What is the current understanding of the cause of Lichen Sclerosus, and what role do external stressors, diet, hormones, and trauma play? 2. How can topical steroids be effectively used to manage Lichen Sclerosus? 3. What are the best strategies for individualized care for Lichen Sclerosus? Resources: Vulvar Lichen Sclerosus: Current Perspectives https://www.vulvodynia.com/assets/files/ijwh-191200-vulvar-lichen-sclerosus-current-perspectives.pdf Topical Corticosteroids in the Treatment of Vulvar Lichen Sclerosus: A Review of Pharmacokinetics and Recommended Dosing Frequencies https://vulvodynia.com/assets/files/Lichen-Sclerosus.pdf Center for Vulvovaginal Disorder http://cvvd.org LSSN Blogs: How to Apply Topical Steroid Treatment for Lichen Sclerosus Correctly https://lssupportnetwork.org/applyproper Lichen Sclerosus Treatment Series Part 1: Steroids https://lssupportnetwork.org/steroids1 LSSN Video: How to Apply Topical Steroid Treatment for Lichen Sclerosus Correctly https://lssupportnetwork.org/drjill Connect with us: Instagram: https://www.instagram.com/lichensclerosussupportnetwork/ Facebook: https://www.facebook.com/lichensclerosussupportnetwork/ YouTube: https://www.youtube.com/channel/@lichensclerosussupportnetwork Website: https://lssupportnetwork.org/ Loved this episode? Make a donation to help us create new content. https://lssupportnetwork.org/donate

Ashlie Crewe, a Physical Therapist with a Psychology degree, embarks on a journey to help patients manage their chronic pain using neuroscience, only to find her own trial by fire as she discovers a unique way to challenge a patient's overprotective nervous system. "The beautiful thing, good and bad, is that physical therapists, we're not allowed to prescribe medicine in the United States. So I think one of the cool things about my job then is we're really taught to work with the human body, and we're not allowed to order imaging, we're not allowed to prescribe medications.” Ashlie Crewe is a Pelvic Health physical therapist and teacher/mentor to Pelvic Health physical therapists across the United States. She has a passion for neuroscience, psychology, and Pelvic Health, making her an expert in persistent pelvic pain. Ashlie Crewe found her true calling when she attended her first pelvic health class after physical therapy school. The class blew her mind and she knew the neuroscience of pain was the way to help patients with persistent pelvic pain. She quickly developed her skills and started to understand how to apply the neuroscience of pain to her practice. She creates a space with her patients to make them feel safe and trusts them to choose their own treatment path. She assesses their tissues, looking for any signs of adherence, and then checks their nervous system to see how it responds. Through this practice, she helps to rewrite the painful stories her patients have been told and shows them that physical therapy can provide them with lasting relief. In this episode, you will learn the following: 1. How does physical therapy help treat chronic pain and persistent pain conditions? 2. How does the relationship with a therapist impact a patient's improvement? 3. How can physical therapists use neuroscience to assess and treat pelvic pain? Resources: International Pelvic Pain Society - https://www.pelvicpain.org/ Drayer Physical Therapy for northeast USA - https://drayer.urpt.com/ Upstream Rehabilitation for across USA - https://urpt.com/ Other episodes you'll enjoy: Lichen Sclerosus and Overactive Pelvic Floor - https://youtu.be/mxQjC3jEoYg Dr. Rachel Rubin: Unlocking Clitoral Fusing Through Non-surgical Lysis - https://youtu.be/F5KO5LGXRx0 Vulva Checks for Lichen Sclerosus: Everything You Need To Know - https://youtu.be/E9fnXDh5up4 Connect with me: Instagram: https://www.instagram.com/lichensclerosuspodcast/ YouTube: https://www.youtube.com/channel/UCQXU-nhfnn-nScR_5VyUdCQ Website: https://lssupportnetwork.org/ If this episode was helpful to you, we'd love your support so we can continue providing important education like this. Make a donation today at https://lssupportnetwork.org/donate. Loved this episode? Leave us a review and rating here: https://lovethepodcast.com/lspodcast

In this podcast episode, Dr. Rachel Rubin sheds light on the startling truth that 23% of all women suffer from Clitoral Adhesions and how her innovative stretching procedure has resulted in a 76% decrease in pain and a 64% increase in orgasm rate for these women. "We have so much work to do because no one taught your doctor how to examine a clitoris. No one. They never learned. They feel like it's not their space and it's not their place, and they feel weird of, what am I looking for? No one ever taught me how to do this." Dr. Rachel Rubin is a urologist and specialist in sexual medicine outside of DC. She has a fellowship in sexual medicine and sees all genders, specializing in pelvic pain, vestibulodynia, hormone issues, and Lichen Sclerosus. Dr. Rachel Rubin was shocked to discover that 23% of all women have some degree of clitoral adhesions. She developed a non-surgical lysis procedure, which combined topical hormones and manual stretching to break up the tissue. Through her research, she found that this method had a 76% decrease in pain and 71% increase in sexual satisfaction. Furthermore, 64% of the women experienced improved orgasmic ability, with six of the women in the study achieving orgasm for the first time. Dr. Rubin was delighted to have found such an effective, non-invasive treatment for clitoral adhesions. In this episode, you will learn the following: 1. Discover why 23% of all women have some degree of clitoral adhesions and what symptoms this can cause. 2. Learn about a new procedure that can help 76% of women reduce pain, improve satisfaction with sex, increase sexual arousal, and even help 64% of women achieve orgasm for the first time. 3. Uncover the secrets to treating lichen sclerosus optimally before any procedure is done, including what hormones and topical treatments can be used. Resources: Check out all the ways Lichen Sclerosus Support Network can help you at https://lssupportnetwork.org. Read Dr. Rubin's blog on the study of non-surgical lysis of clitoral adhesions at https://www.rachelrubinmd.com/post/new-research-on-clitoral-adhesions Connect with Dr. Rubin Website - https://www.rachelrubinmd.com/ Instagram - https://www.instagram.com/drrachelrubin Twitter - https://twitter.com/drrachelrubin Facebook - https://www.facebook.com/DrRachelRubin/ Linked In - https://www.linkedin.com/in/rachel-rubin-7433b0134/ Learn more about anatomical changes caused by Lichen Sclerosus in our blog - https://lssupportnetwork.org/architectural-changes-lichen-sclerosus/ Connect with us: Instagram: https://www.instagram.com/lichensclerosussupportnetwork/ YouTube: https://www.youtube.com/channel/@lichensclerosussupportnetwork Website: https://lssupportnetwork.org/ Loved this episode? Leave us a review and rating here:  https://lovethepodcast.com/lspodcast  

Hey! Welcome! I'm on a bit of a hiatus with Podcast as I build out Lichen Sclerosus Support Network, but, when my girl Jaclyn from The Lost Labia Chronicles told me about her latest project, I was like, "girl, we need to make a podcast episode and let our community know". So here we are! If you experience a lot of stress from living with lichen sclerosus, you definitely want to listen to this amazing opportunity that I just know you will want in on. Vagus Nerve and Lichen Scleorsus Workshop June 21 and 23 6-8 PM EDT - Get all the information and signup at lostlabia.com/stressworkshop. If you are in the Philadelphia or Fl area I will be in your area soon for an in-person meetup! Signup for our newsletter at lssupport.net to get notified about dates and times. As always feel free to email me at kathy@lssupport.net.

Today we talk to Shauna Farabaugh, a somatic sex educator about how it can help us have a sexual rebirth. Shauna is one of our Holistic Healing Summit speakers. We hope you can join us. With over 30 sessions dedicated to approaching LS from a whole-body approach, there's something for every LS Warrior. Find out more at holistichealingsummit.live We're excited to announce the Get Your Sexy Back program! If LS has taken your mojo and you're ready to take it back this is the class for you! Find out more at lswarrior.com/rebirth Want to reach out to Shauna? Awesome! Email her at farabaugh.shauna@gmail.com. And check out her website at sexualityintransition.com   As always email me at kathy@lssupport.net and follow me on IG @lichensclerosuspodcast!      

I am so excited to bring you Angie Alt! Angie is a Certified Health Coach with the Institute of Integrative Nutrition as well as a Functional Nutritional Therapy Consultant with the Nutritional Therapy Association. She's one of the originators of the Autoimmune Protocol, also known as AIP. Listen as she walks us through her LS story and discovers diet and lifestyle changes that keep her in remission for 19 years. If you want to work with Angie or become an AIP certified trainer check out the links below. www.autoimmunewellness.com sadtoaip.com for AIP coaching program www.aipcertified.com Shout out to Lichen Sclerosus Support Network. We're currently working on our annual Holistic Healing Summit. We need volunteers. If you can donate some of your time please fill out our volunteer form at lssupport.net/volunteers. If you're in need of support, join us in the next LS Support Virtual Meetup. Signup at lssupport.net/connect for more details.    

Were you given a steroid treatment for your LS but not told when or how to use it? Or were the directions unclear, but you're not sure where to turn to for information? Don't worry because we get answers to those questions in this episode and more with Dr. Jill Krapf, leading LS researcher and specialist. To contact and work with Dr. Krapf, go to www.cvvd.org and fill out their contact form or call them. You can also follow Dr. Krapf on Instagram and Facebook @jillkrapfmd. Thanks to, Lichen Sclerosus Support Network (LSSN). LSSN is helping get people diagnosed earlier and get the treatment and care they deserve. Follow them on IG and FB @lichensclerosussupportnetwork and visit their new website lssupportnetwork.org. Also, be sure to check out our membership at lssupport.net/joinwarriors. Or join us every other Saturday in the free virtual meetups. Find out more information and signup at lssupport.net/connect.

It's a new year and a perfect time to set goals. I'm not just talking about life goals, either. I'm talking about health goals! We set at least one life and one LS goal we want to work on inside our private membership. Every week we set mini-goals to get us to our big goals. And let me tell you, this process WORKS. We've had so many amazing transformations working through this process. In this episode, I walk you through why it's important to set health goals and how to start doing it. If you're interested in working towards your goals with a group of like-minded women, join the LS Warriors today! We're just getting started. We have our first live meeting on 1/14/22. We'll be working together towards acceptance and resilience for the next five months. Jump on the train and start making headway on your health journey. Let us support you along the way. Go to lssupport.net/joinwarriors to get your first month free. I can't wait to see you in the membership. If you have any questions feel free to email me at kathy@lssupport.net.  

Welcome. If you've been listening to the podcast for a while, I want to give you a shout-out and thank you for sticking with me this year. This was the year of transition, and because of that, there weren't very many episodes published, but you kept coming back. I appreciate you so much! If you've just found me, I want to thank you for listening, and I hope you get value out of it. At the very least, know that you are not alone. Since this is the last episode of 2021, I thought it would be fun to look back at the top five episodes of the year. These are fan favorites, and I totally get why. So if you're looking for something to keep you busy while I'm away for the next two weeks, get ready to mark these down so you can listen to them later. In no particular order, the first episode is my interview with Dr. Jill Krapf, titled “How are reproductive age women and steroids similar, with Dr. Jill Krapf.” This episode discusses research into younger women with Lichen Sclerosus and the proper way to use ultra-potent steroids as a treatment. You can access the episode at lssupport.net/drjill. The next episode is all about appointment anxiety. It's titled “How to Snap Out of Appointment Anxiety.” I share a recent experience of appointment anxiety and the techniques I used to snap out of it. Go to lssupport.net/appointmentanxiety to listen to this episode and for complete show notes. The next episode is “The Lost Labia Journey: Finding Community.” If you're looking for inspiration and hope to get you through the tough times, this is the episode for you. Jaclyn is an LS Warrior, as well as an LS advocate. This is the second episode of a two-part series detailing her more than decade-long battle with LS. We find out how she not only learned to manage her disease but used it to better the lives of others living with LS. She is now the author of The Lost Labia Chronicles blog, which you can find at Lostlabia.com, and has recently released her first eBook, titled “Three Key Things To Have In Place When You Have Vulvar Lichen Sclerosus,” which you can get for free at lostlabia.com/ebook. Listen to her episode at lssupport.net/findingcommunity. Have you listened to Ashley Stump PFPT's episode “Pelvic Floor Physical Therapy Can Help You Feel Better”? It's the next top five episode of 2021. If you've ever wondered or thought about PFPT, this is the episode for you! Ashley shared so much amazing information on how PFPT can help those of us with LS. Check it out at lssupport.net/pfpt. “Lichen Sclerosus And Diet? Does The Research Look Good?” rounds out the top five. Dietitian Erica Eberl did a deep dive into LS research, looking for any connection between diet and LS. You can listen to what she found and more at lssupport.net/diet. I couldn't leave you without mentioning an honorable mention: “How to keep your quality of life with Lichen Sclerosus.” Have you stopped doing things you loved, using your favorite products, or eating your favorite foods because you heard it wasn't good for your LS? I'm here to ask you, “How do you know?” Before you go letting LS dictate how and what you do in your life, listen to this episode, lssupport.net/lscontrol. I hope you have a happy new year, and I look forward to talking to you in 2022.

Today I am joined by the amazing dermatologist, Dr. Sandy Flann, who is an expert on pediatric Lichen Sclerosus. Yes, you heard that right, Pediatric Lichen Sclerosus! As we know, Lichen Sclerosus can affect anyone, of any age - children included. Unfortunately, there is a lack of research and resources for parents of children with Lichen Sclerosus. So, today we're going to find out about treatment, what to look for, the progression of symptoms, and how we can help our children become comfortable in their skin. This is an important episode if you have a child with LS, or if you plan on having children (as it's important to know some of the warning signs to be able to advocate for your child). Furthermore, because there may be a genetic component to LS, you never know who in your family you may be able to help. I want to thank our sponsor, Lichen Sclerosus Support Network (LSSN) for making this podcast possible. LSSN is helping get people diagnosed earlier and get the treatment and care they deserve. Follow them on IG and FB @lichensclerosussupportnetwork and visit their website lssupport.net. Also, be sure to check out our membership at lssupport.net/joinwarriors. Or join us every other Saturday in the free virtual meetups. Find out more information and signup at lssupport.net/connect. Visit lssupport.net/kidls for full show notes.

Hey, welcome. In this episode, I decided to take a little break from the interviews, and speak from the heart. This is something I felt compelled to speak on. I want to talk about not letting Lichen Sclerosus control your life; not letting it rob you of the vibrant and wondrous person you are. I want to thank our sponsor, Lichen Sclerosus Support Network (LSSN) for making this podcast possible. LSSN is helping get people diagnosed earlier and get the treatment and care they deserve. Follow them on IG and FB @lichensclerosussupportnetwork and visit their website lssupport.net. Also, be sure to check out our membership at lssupport.net/joinwarriors. Or join us every other Saturday in the free virtual meetups. Find out more information and signup at lssupport.net/connect. Visit lssupport.net/lscontrol for full show notes.

Hey! Welcome! Have you ever wondered what lube is best for Lichen Sclerosus? Perhaps you felt overwhelmed by the massive selection of lube options online and had no clue what to buy? Have you ever wondered what you should look for and avoid in a lube? If yes, this is the episode for you! Today I am here with my amazing friend and follow LS warrior, Jaclyn, from The Lost Labia Chronicles, and we are going to be talking about lubrication, artificial lubrication, that is. But before we jump into this, click here to subscribe to The Lost Labia Chronicles, which dives into sex, mental health, and Lichen Sclerosus through blogs and YouTube videos. I'm am so happy to be here with my girl to talk with y'all about lube (what kind of lube is right for you, Jaclyn's experience with dilators and lube, what you want to consider in choosing a lube, etc). I want to thank our sponsor, Lichen Sclerosus Support Network (LSSN) for making this podcast possible. LSSN is helping get people diagnosed earlier and get the treatment and care they deserve. Follow them on IG and FB @lichensclerosussupportnetwork and visit their website lssupport.net. Also, be sure to check out our membership at lssupport.net/joinwarriors. Visit lssupport.net/lubes for full shownotes.

Today, I am here with Dr. Cynthia Wesley (aka Dr. Cyn), a board-certified OBGYN with over 16 years of experience and a vulvar skin expert. Dr. Cyn is passionate about vulvar care, hygiene, and grooming. She will share her tips on how to take care of your vulva when you have Lichen Sclerosus. We discussed everything from using the bathroom, bathing, moisturizing, hair removal, and more. So many great tips in here. Resources mentioned in the episode: Dr. Cyn's website: drcynobgyn.com Dr. Cyn's exclusive vulvar products waitlist: beautybelowmd.com Pre-order Dr. Cyn's new book here: beautybelowbook.com  Dr. Cyn's social media: @drcynobgyn on Facebook and Instagram For complete show notes and all the links mentioned in this episode visit lssupport.net/grooming. Thank you to our sponsor, Lichen Sclerosus Support Network. Working towards getting people diagnosed earlier and getting treated better. Be sure to follow them on IG and FB @lichensclerosussupportnetwork and visit their website lssupport.net. Also, be sure to check out our membership at lssupport.net/lswarriors.

Hey welcome! This week I'm so excited to finally publish this episode with Ashley Stump. She's a pelvic floor physical therapist who knows all about Lichen Sclerosus. I learned so much during this episode, we talked about what pelvic floor physical therapy is, why women with Lichen Sclerosus need it, what to expect on your first visit, and we talked about lubes. We talked about so much, so much gold and she even gave us tips on what to look for when you're looking for a new pelvic floor physical therapist, and some resources are where to find one. For complete show notes and all the links mentioned in this episode visit lssupport.net/pfpt. Thank you to our sponsor, Lichen Sclerosus Support Network. Working towards getting people diagnosed earlier and getting treated better. Be sure to follow them on IG and FB @lichensclerosussupportnetwork and visit their website lssupport.net. Also, be sure to check out our membership at lssupport.net/lswarriors.

If you're seeing two of these or getting this episode really late, apologies. I realized half of my listeners didn't get the episode because I released it in video format versus audio.

Heeeyyy! Longtime no see. lol Life has been busy and a bit hectic and I'm ready to let you in on everything that's been going on. And the most exciting news. You'll be getting new episodes starting Nov 5! First off we have incorporated Lichen Sclerosus Support Network and we are an official not-for-profit! Find out what we've been doing and what our future plans are. Want to volunteer? lssupport.net/volunteer Want to donate? lssupport.net/donate Secondly, my family caught covid and my husband and I ended up in the hospital. It's turned our world upside down. My husband, Lorenzo, still hasn't made it home. Lorenzo was our source of income so I could concentrate on educating and supporting people with LS. With him not being able to work everything is a little up in the air. If you would like to help us during this time we would deeply appreciate it. You can donate at https://gofund.me/50b5eada or  https://venmo.com/u/Kathy-Ruiz-Carter So I hope this catches you up to speed and you're prepared for some amazing interviews. Excited to be with you again. Feel free to email me at kathy@lssupport.net.

Hope you’ve had a chance to hear about our new venture into the nonprofit realm. If not read all about it on our website. lssupport.net/nonprofit or listen to the previous episode. It’s exciting, right! Just when you thought it couldn’t get any better we’re back with more. Today we’re announcing our first fundraising event, Lichen Sclerosus Holistic Healing Summit sponsored by Lichen Sclerosus Support Network. In celebration of National Women’s Health Week, we’re bringing you 5 days of information-packed events in support of a holistic approach to healing. We hope you’re able to join us! Get your tickets today at lssupport.net/lssummit. Follow LSSN for more updates in IG and FB @lichenslcerosussupportnetwork

Hey!!! Welcome! I'm so happy you're here. I've got some AMAZING news. We have released the searchable provider directory! It's ready for you to explore. It's brand new so we have to work out all the kinks as we grow it but it's better than nothing. https://lichensclerosuspodcast.com/searchable-lichen-sclerosus-provider-database/ We have some equally exciting news. We are turning Lichen Sclerosus Support Network into an official nonprofit! Our mission will be to prevent the negative emotional and mental health effects that can come with an LS diagnosis. That's right we are going to spread the message even further and help more people. So if you can help, please do your part because it's going to take the whole community. Check out our new webpage and read all about the exciting things we have coming. https://lichensclerosuspodcast.com/nonprofit Donate: https://fundly.com/lichen-sclerosus-support-network# I can't wait to hear your reaction. Let me know what you think and how you can help the community. Email me at kathy@lichensclerosuspodcast.com or DM me on IG @lichensclerosuspodcast.

Hey! Welcome! I’m so glad you are here with us today! We are going to shake this up a bit and have a live round table discussion about the concepts of acceptance and resilience with some members of the LS Warriors membership. The concepts of acceptance and resilience are critical to living with a disease such as Lichen Sclerosus. In this round table discussion, I will ask our participants a series of questions relating to these concepts and Lichen Sclerosus. I would love to hear your thoughts on acceptance and resilience. Email me at Kathy@lichensclerosuspodcast.com or DM me on IG @lichenslcerosuspodcast. Join our next LS Support Virtual Meetup from 2-4 and 7-9 PM EST. at https://lssupport.net/connect. Or join LS Warriors for 24/7 support and information. https://lssupport.net/lswarriors. Reach out to Jaclyn by email at lostlabiachronicles@gmail.com or DM her on IG @thelostlabiachronicles. Also, be sure to join her email list so you get notified when she releases a new blog post. https://lssupport.net/jointllc Support our sponsor Lichen Sclerosus Support Network by following them on IG @lichensclerosussupportnetwork and check out their website https://lssupport.net for all the ways they can support you on your LS journey.

I’m so glad you are here with us today. In today’s episode, we are joined by Jen, one of the LS Warriors! She is here to share the amazing story of her journey with Lichen Sclerosus. Jen’s journey involves a traumatic birth and a lot of stress to her vulva and vagina. She discusses what this process was like, how her symptoms manifested after the birth of her daughter, her diagnosis, and how she now deals with stress and Lichen Sclerosus. If you want to reach out to Jen, you can message her on Twitter and/or Instagram @jenpatala. Email me at Kathy@lichensclerosuspodcast.com or DM me on IG @lichenslcerosuspodcast. Join our next LS Support Virtual Meetup from 2-4 and 7-9 PM EST. at https://lssupport.net/connect. Or join LS Warriors for 24/7 support and information. https://lssupport.net/lswarriors. Reach out to Jaclyn by email at lostlabiachronicles@gmail.com or DM her on IG @thelostlabiachronicles. Also, be sure to join her email list so you get notified when she releases a new blog post. https://lssupport.net/jointllc Support our sponsor Lichen Sclerosus Support Network by following them on IG @lichensclerosussupportnetwork and check out their website https://lssupport.net for all the ways they can support you on your LS journey.

Today we are joined by Erica Ebrel, a registered dietician and fellow Lichen Sclerosus warrior. Erica is here to talk to us about the relationship between the food we eat and Lichen Sclerosus. She is going to tell us all about what the research says, what we should do if we are interested to know if diet impacts our Lichen Sclerosus, and weighs in on some popular Lichen Sclerosus diets (e.g., low-oxalate). I am so grateful for this amazing conversation with Erica. If you want to reach out and talk to her, you can find her on Instagram @ericasappletite or email her at ericaeberl.dietition@gmail.com. Let me know if diet affects your LS or if you're trying to figure that out. Email me at Kathy@lichensclerosuspodcast.com or DM me on IG @lichenslcerosuspodcast. Join our next LS Support Virtual Meetup from 2-4 and 7-9 PM EST. at https://lssupport.net/connect. Support our sponsor Lichen Sclerosus Support Network by following them on IG @lichensclerosussupportnetwork and check out their website https://lssupport.net for all the ways they can support you on your LS journey.

This week we're talking to Heather Cooan once again. If you did not get a chance to check out Heather's diagnosis story, which were the previous two episodes, go back and listen because she shared her amazing story of how she found out she had vulva cancer and how it changed her life. Post healing she was looking for how she could get into the natural healing space to pay it forward and help other women. This led her to her new field and love of nutrition, where she ultimately become a nutrition therapy practitioner and a  functional diagnostic nutrition practitioner. Today we’re going to find out exactly what they do and how she could help us heal our Lichen Sclerosus. If you’re interested in leaky gut or how hormones or food sensitivities trigger our LS this is the episode for you. Find out what buckets are triggering your health issues by taking Heather's test at https://heathercooan.com/lspodcast. While you're there be sure to schedule a free consultation with Heather and follow her on her social media platforms. Email me at Kathy@lichensclerosuspodcast.com or DM me on IG @lichenslcerosuspodcast and let me know your experiences with nutrition. Or better yet join our next LS Support Virtual Meetup every other Saturday from 2-4 and 7-9 PM EST. at https://lssupport.net/connect and tell me in person. Support our sponsor Lichen Sclerosus Support Network by following them on IG @lichensclerosussupportnetwork and check out their website https://lssupport.net for all the ways they can support you on your LS journey.

Today we are joined (again) by therapeutic nutrition consultant, LS warrior, and cancer survivor, Heather Cooan. Last episode we heard her diagnosis story. Unfortunately, Heather went undiagnosed for over 25 years, allowing her Lichen Sclerosus to develop into vulvar cancer. This was a gross failure of the medical system. In today’s episode, we learn how Heather advocated for herself and fought for her values. Today her Lichen Sclerosus is in remission and she is now cancer-free! Her story reminds us of the importance of self-advocacy in the medical realm. Be sure to subscribe so you don't miss the next episode where Heather details how a Nutrition Therapist can help us get healthy. I want to hear from you. What has advocating for yourself done in your life? Email me at kathy@lichensclerosuspodcast or DM me on Instagram @lichensclerosuspodcast. I want to thank our sponsor, the Lichen Sclerosus Support Network (LSSN) for making this podcast possible. LSSN is helping bring awareness, information, education, and most importantly support to all Lichen Sclerosus warriors. Be sure to follow them on IG and FB @lichensclerosussupportnetwork. Resources: If you are in the Phoenix area, check out Dr. Joseph Brook’s here: https://www.arizonaspecializedgynecology.com/provider/joseph-brooks-md Dr. Bhoola: https://arizonaoncology.com/covid19/ If you are battling vulvar cancer, check out the vulvar cancer awareness forum here: https://www.facebook.com/vulvarcancerawarenessforum/ For nutritional consultations, see Heather’s website: https://heathercooan.com/ If you haven't joined the email list for The Lost Labia Chronicles, a blog about beating Lichen Sclerosus, you want to do that today. https://lichensclerosuspodcast.com/lost-labia-chronicles-landing-page/ Be sure to follow her on IG and FB @thelostlabiachronicles.  

Today we are joined by therapeutic nutrition consultant, LS warrior, and cancer survivor, Heather Cooan. Heather’s journey from how the medical system let her down to self-advocacy and taking control of her health and body is nothing short of incredible.  Her story will be told in two parts. Today, we begin with when Heather’s symptoms first began to manifest, how they impacted her life, and how she was repeatedly let down by the system. Email me at kathy@lichensclerosuspodcast.com or DM me on IG @lichensclerosuspodcast and let me know what you thought of Heather's story so far. I want to thank our sponsor, the Lichen Sclerosus Support Network (LSSN) for making this podcast possible. LSSN is helping bring information, education, and most importantly support to all Lichen Sclerosus warriors. Be sure to follow them on IG and FB @lichensclerosussupportnetwork. Virtual Meetup Information We meet every other Saturday from 2-4 pm and/or 7-9 pm Eastern Standard Time. This is your opportunity to share your diagnosis story, what is working for you and what isn’t, and ask a question to the group. Perhaps share your experience with the system letting you down! I have met so many incredibly strong LS warriors through these meetups, and I would love for you to join our community.  Sign up at lssupport.net/connect for notifications and updates! Our next meetup is on March 20th, 2021. I cannot wait to meet you! Resources: For nutritional consultations, see Heather’s website: https://heathercooan.com/ If you are battling vulvar cancer, check out the vulvar cancer awareness forum here: https://www.facebook.com/vulvarcancerawarenessforum/ If you are in the Phoenix area, check out Dr. Joseph Brook’s here: https://www.arizonaspecializedgynecology.com/provider/joseph-brooks-md  Dr. Bhoola: https://arizonaoncology.com/covid19/

Hey! Welcome. I'm excited to bring you the second part of my conversation with my LS sister, Jaclyn. In this episode, she shares what it took to go from suffering so bad she had to stop having sex with her new husband to having multi-orgasm sex multiple times a week. I hope this story inspires you because you can do this too! I truly believe you can. It won't be easy but you absolutely can. Please let me know if you're ready to start down the path back to health. We're here to support you. Email me at Kathy@lichensclerosuspodcast.com or DM me on IG @lichenslcerosuspodcast. Join our next LS Support Virtual Meetup from 2-4 and 7-9 PM EST. at https://lssupport.net/connect. Ready for 24/7 support? Join the waitlist for LS Warriors. A family that understands what you're going through. https://lssupport.net/lswarriors Reach ou/t to Jaclyn by email at lostlabiachronicles@gmail.com or DM her on IG @thelostlabiachronicles. Also, be sure to join her email list so you get notified when she releases a new blog post. https://lssupport.net/jointllc Support our sponsor Lichen Sclerosus Support Network by following them on IG @lichensclerosussupportnetwork and check out their website https://lssupport.net for all the ways they can support you on your LS journey. Resources Mentioned In This Episode: Heather’s website: https://feminapt.com/ and her Instagram @theladypartspt Want to buy Heather's book? Buy it at http://sexwithoutpainbook.com/ – use code LICHENS20 for 20% for a limited amount of time.

Hey! Welcome to the Lichen Sclerosus Podcast. I have a very special LS Warrior with us today, Jaclyn, who is going to share the story of her journey with Lichen Sclerosus. Her progression from feeling alone and hopeless to empowered and thriving is captivating! Jaclyn is truly a beacon of light in our Lichen Sclerosus community and her story is sure to captivate you. This is the story of how Jaclyn began her Lichen Sclerosus journey with little information. While she had started to compile a team (i.e., her doctor, her sex therapist, her pelvic floor physiotherapist, her husband, friends, and family), she felt very alone in her diagnosis. She longed for community and connection. Come back next week to hear about how Jaclyn found her community and how she is now able to have amazing, pleasurable, pain-free sex! Join us at our next virtual meetup. We meet every other Saturday from 2-4 pm and/or 7-9 pm Eastern Standard Time. This is your opportunity to share your diagnosis story, what is working for you and what isn’t, and ask a question to the group. I have met so many incredibly strong LS warriors through these meetups, and I would love for you to join our community.  Sign up at https://lichensclerosuspodcast.com/connect for notifications and updates! Our next meetup is on March 6th. I cannot wait to meet you! Need immediate help email me at Kathy@lichensclerosuspodcast.com or DM me on IG @lichenslcerosuspodcast. I want to thank our sponsor, the Lichen Sclerosus Support Network (LSSN) for making this podcast possible. LSSN is helping bring information, education, and most importantly support to all Lichen Sclerosus Warriors. Be sure to follow them on IG and FB @lichensclerosussupportnetwork. I am super excited to announce that Jaclyn will be starting her blog called The Lost Labia Chronicles, sponsored by the LSSN, which will go live next Tuesday (March 2nd, 2021). Jaclyn is freaking amazing, and you will definitely want to follow her blog. I have watched this woman go through an amazing transformation, and her stories, her advice, and her wisdom are next level. In her blog she will take you through her journey, you will get all the raw, unfiltered emotions and feelings and learn how she got out of that dark space. Her story is one of hope. Subscribe to her blog at lssupport.net/jointllc to get updates and notifications. Her first blog post will go live on March 2nd, but if you sign up before, you’ll get a sneak peek at her first post. If you want to reach out to Jaclyn, you can DM her on Instagram or Facebook @thelostlabiachronicles or via email at lostlabiachronicles@gmail.com.  

This week we talk about an awful drive I recently had to the doctor's office. I was overtaken by negative thoughts and emotions of what the future might bring. Eventually, I pulled myself out of those negative thoughts and emotions so I could do what I needed to do. I want to share with you my technique for staying in the present and changing my focus. This podcast is brought to you by Lichen Sclerosus Support Network, providing information, education, and support for people with Lichen Sclerosus. Find the full show notes at https://lichensclerosuspodcast.com/appointmentanxiety. Follow me on IG @lichensclerosuspodcast or FB https://www.facebook.com/lichensclerosussupportnetwork Announcing new Spanish LS podcast coming March 1, 2021. Linquen Escleroso, hosted by two LS Warriors bringing you the information and realness behind LS en español. Signup now to be notified of updates at https://lssupport.net/spanish and follow them on IG @liquenescleroso. Also announcing The Lost Labia Chronicles. A young woman's fight from crippling sexual pain, and vulvar dysmorphia to self-love, and multiple orgasm lovemaking. Learn how to beat LS at its own game. Signup early for email notifications and get a peek at the first post before everybody else. https://lssupport.net/jointllc/ And follow her on IG @thelostlabiachronicles.    

Does Lichen Sclerosus make penetrative sex painful for you? Has LS been a factor in a relationship breakup? Are you single and wonder if you'll ever be in a healthy relationship again? These are all questions this week's guest had to confront. After the demise of her 10-year marriage, she was determined to find out what was happening to her body. It took many more years for her to get a diagnosis, find acceptance, and ultimately love. Not just romantic love but love for herself. I invite you to listen to this brave woman's journey because it may just inspire you to take the first step on yours. Carrie Bock is an anxiety and OCD counselor at By The Well Counseling. She also hosts Hope For Anxiety and OCD Podcast, which is all about decreasing shame, increasing hope, and developing a healthy relationship with God and others. Her podcast is available on all podcasting platforms. If you would like to get in touch with or work with her you can follow her on IG @hopeforanxietyandocdpodcast, on FB @hopeforanxietyandocd, or check out her websites www.bythewellconsouling.com and www.hopeforanxietyandocd.com. To get in touch with Carrie's doctor near Nashville go here. https://centerforpelvichealth.org/specialist/ Find the full show notes for this episode at https://lichensclerosuspodcast.com/hopeforanxiety. Or if you would like to watch the video of this interview go to https://youtu.be/ziURuvnx81M. If you haven't yet, sign up for our virtual meetup at lichensclerosuspodcast.com/connect. I am now offering the virtual meetup two times every other Saturday, 2-4 and 7-9 PM EST – come and connect with us! We'd love to have you be a part of our community. Share your story and ask questions in a safe space with others that get you. I look forward to talking to you again next week. Bye!

Welcome to season 2 of Lichen Sclerosus Podcast. For our first episode, the esteemed Dr. Jill Krapf and I discuss new research into women of reproductive age with LS. This under-studied group is often misdiagnosed or turned away being told ridiculous things. If you're between 18 and 50 and want to be part of the research head over to lichensclerosuspodcast.com/survey and fill out the questionnaire. Make your voice heard. We also discuss how the proper application of steroids can make a difference to our disease. She lays out exactly how to use, when to use, and how often to use the medication. I hope you enjoy this first episode back because I missed you and can't wait to start talking to you again. If you haven't signed up for the virtual meetups yet, do it now! Go to lichensclerosuspodcast.com/connect. we meet every other Saturday from 2-4 and 7-9 PM EST. You can follow Dr. Jill on IG @jillkrapfmd, the CVVD @the.CVVD, and myself @lichensclerosuspodcast. To read the full notes go to lichensclerosuspodcast.com/drjill. I hope you have an amazing week and I will talk to you next time. Bye!  

I woke up this Thanksgiving with a message of gratitude on my heart. Please don't let the fear and anxiety of Lichen Sclerosus pull you from the joy and happiness in your life. Find and focus on the pockets of gratitude and positivity. Make sure you sign up for next months virtual meetup at https://www.subscribepage.com/lsconnect And don't forget to follow me: IG - https://www.instagram.com/lichensclerosuspodcast/ FB - https://www.facebook.com/lichensclerosussupportnetwork

Fresh off the first Lichen Sclerosus Podcast Virtual Meetup I'm excited to bring fresh insights. As I'm sure you know because you live it Lichen Sclerosus does terrible things to our sex life. Sometimes stopping it completely. This week we look at how our libido is impacted by LS and how we can get it back. There's tons of information to look at. All links will be on the website show notes page at https://lichensclerosuspodcast.com/libido. Make sure you sign up for next months virtual meetup at https://www.subscribepage.com/lsconnect And don't forget to follow me: IG - https://www.instagram.com/lichensclerosuspodcast/ FB - https://www.facebook.com/lichensclerosussupportnetwork

I'm so excited to bring back one of my favorite guests. Lou! If you don't know who Lou is go back and listen to the episode "Lou's Diagnosis Story". She is so much fun and I could not wait to speak with her again. We go in-depth on my story and discuss some of the decisions I made. My hope is that you learn something from my experiences or at the very least know that you are not alone. Please reach out: IG - https://www.instagram.com/lichensclerosuspodcast/ FB - https://www.facebook.com/lichensclerosussupportnetwork Website - lichensclerosuspodcast.com Don't forget to signup for the virtual meetup. - https://www.subscribepage.com/lsconnect  

This week four Lichen Sclerosus Warriors share their diagnosis stories with us. Although each of their stories is individualized they all have similarities to our own. LS can be such a lonely disease but by sharing our stories we realize there are thousands of women feeling and going through what we are going through. I hope you feel a little less alone today after listening to this episode. Don't forget to signup for the Lichen Sclerosus Podcast Virtual Meetup - https://lichensclerosuspodcast.com/connect/ Other episodes mentioned: The Mental Side of Lichen Sclerosus - https://lichensclerosuspodcast.com/the-mental-health-side-of-lichen-sclerosus/ Why I hesitated to check my vulva but you shouldn't delay. - https://lichensclerosuspodcast.com/time-to-check-your-vulva/   Do you need a support group? - https://lichensclerosuspodcast.com/do-you-need-a-support-group/   How to still have a great relationship despite Lichen Sclerosus - https://lichensclerosuspodcast.com/how-to-still-have-a-great-relationship-despite-lichen-sclerosus/   Get in touch with me: Instagram @lichensclerosuspodcast FB @lichensclerosussupportnetwork Website https://lichensclerosuspodcast.com/ Email kathy@lichensclerosuspodcast.com

Have you ever thought about how LS will or has affected your relationship? How it has or will affect your partner? This week I was inspired by a DM I received on Instagram from a young man looking to support his companion. The love and care he expressed sent me looking for actionable tips for how we can maintain healthy happy relationships despite LS. Listen to find out how we can support each other in our relationship, how our partners can support us, and how we support our partners. So grab your partner. Sit down and listen together. This episode is guaranteed to spark conversations. Let me know which was your favorite tip. What came out of it for your relationship? Reach me on IG @lichenscperosuspodcast, FB @lichensclerosussupportnetwork, or email me at Kathy@lichensclerosuspodcast.com. Don't forget to signup for the first LSP Virtual Meetup on November 14, 2020. Go to https://www.subscribepage.com/lsconnect

Do you have the itch? You know the one I'm talking about. The one that makes your vulva feel like ants are crawling all over it. That unforgiving desire to scratch. Yeah, that one. This week we discuss why we itch when we do and I give you seven ways ladies combat the itch. As always don't forget to subscribe and share. Follow me on Instagram @lichensclerosuspodcast and on FB @lichensclerosussupportnetwork. Full show notes at lichensclerosuspodcast.com/vulvaritch