Podcasts about multiple sclerosis association

Hope and Help For Fatigue & Chronic Illness

Play Episode Listen Later Dec 19, 2024 11:47

This special episode of RealTalk MS is sponsored by EMD Serono and is only intended for a U.S. audience. EMD Serono is the healthcare business of Merck, KGaA, Darmstadt, Germany, in the United States and Canada. In this special episode of RealTalk MS, Dr. Mary Rensel and Amanda Montague join me to explore HCP (Healthcare Provider) burnout and patient empowerment; and we'll be taking a close look at how patients and their healthcare providers can work together to support one another. Dr. Mary Rensel is an Assistant Professor of Medicine at the Cleveland Clinic Lerner College of Medicine and Director of Pediatric Multiple Sclerosis and Wellness at the Mellen Center for Multiple Sclerosis at the Cleveland Clinic. Amanda Montague is a global thought leader and Chief Mission Officer at the Multiple Sclerosis Association of America. Amanda is also an active member of the MS in the 21st Century initiative, more commonly known as MS21. MS21 is a Merck KGaA, Darmstadt, Germany, initiative involving healthcare professionals, or HCPs, and patient advocates. To learn more about MS in the 21st Century, please visit www.msinthe21stcentury.com.

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EP37: The Role Of The Nervous System In Chronic Illness

Play Episode Listen Later Sep 3, 2024 61:24

Learn more about the clinical trials at Gateway Institute for Brain Research. https://www.gifbr.com In this week's episode, host Haylie Pomroy is joined by Dr. Daniel Kantor, President Emeritus of the Florida Society of Neurology. Together, they discuss the connection between the nervous and immune systems in chronic illnesses, such as multiple sclerosis, long COVID, and Epstein-Barr virus infection. Haylie and Dr. Kantor go in-depth about conditions like multiple sclerosis and Parkinson's disease and show how these illnesses involve both the brain and the body's defense system. They also emphasize the importance of lifestyle choices, the environment, and genetics in managing these conditions. They also offer valuable information and easy-to-follow advice to help you understand and manage chronic illnesses better. Tune in to the Hope and Help for Fatigue and Chronic Illness Podcast – The Role Of The Nervous System In Chronic Illness with Dr. Daniel Kantor. Do you have more questions for Dr. Daniel Kantor? Ask him here. https://www.wehealth.io/ask-dr-kantor/ If you are interested in joining a Gulf War Illness (GWI) trial, please complete the Recruitment Registry Form. https://redcap.nova.edu/redcap/surveys/?s=Y9YF8JJWJRK8HEKL%20&_gl=1*1fipp18*_gcl_aw*R0NMLjE3MDc5MTgwMzIuRUFJYUlRb2JDaE1JeWNyUXVfcXFoQU1WU1pCYUJSM3AyQWRBRUFBWUFTQUFFZ0s1NWZEX0J3RQ..*_gcl_au*MTg2NjgwMDQ4Ni4xNzA3MTQwNzgx Donate to ME/CFS Research: https://givecampus.com/b3yrwb Learn more about INIM's Research Studies: https://www.nova.edu/nim/research-studies/index.html Sign up for the COVID-UPP Study: https://redcap.nova.edu/redcap/surveys/?s=RMEDJ7LKCX&_gl=1*1h830h7*_gcl_au*MTM2NDA0MTQyOS4xNzE1MDA0ODAy Daniel Kantor, MD, FAAN, is the president emeritus of the Florida Society of Neurology and the founding president of Medical Partnership 4 MS (MP4MS). He actively serves on advisory committees for the Multiple Sclerosis Foundation (MSF), the Multiple Sclerosis Association of America (MSAA), and MS Views and News (MSVN). Dr. Kantor is the chief medical correspondent for MS World and co-scientific director of the Corrona MS patient registry. He has held leadership roles including chair of the Florida Medicaid Pharmacy & Therapeutics Committee, director of the Comprehensive MS Center at the University of Florida - Jacksonville, and neurology residency program director at Florida Atlantic University. He is board-certified in neurology and headache medicine. Facebook: https://www.facebook.com/KantorNeurology Instagram: https://www.instagram.com/kantorneurology/ Twitter: https://twitter.com/DrDanielKantor LinkedIn: https://www.linkedin.com/in/kantorneurology/ ------------------------------------------------------------------------------------------------- Enjoy our show? Please leave us a 5-star review so we can bring hope and help to others. Sign up today for our newsletter. https://nova.us4.list-manage.com/subscribe?u=419072c88a85f355f15ab1257&id=5e03a4de7d This podcast is brought to you by the Institute for Neuro-Immune Medicine. Learn more about us here. Website: https://www.nova.edu/nim/ Facebook: https://www.facebook.com/InstituteForNeuroImmuneMedicine Instagram: https://www.instagram.com/NSU_INIM/ Twitter: https://www.twitter.com/NSU_INIM #ChronicIllness #ImmuneSystem #NervousSystem #EnvironmentalToxins #Genetics #ComplexIllness #Nutrition #LongCOVID #MultipleSclerosis #EpsteinBarr #COVID19 #ClinicalResearch #MedicalResearch #HealthPodcast

173. Early Symptoms of MS & MS Prodrome w/ Dr. Barry Singer

Asking For A Friend with TalkDoc

Play Episode Listen Later Mar 27, 2024 29:24

Thank you so much for tuning in today. I am interviewing Dr. Barry Singer. This is his second time on our podcast and I'm so excited to have him share his expertise with us. On today's episode, we talk about early symptoms of multiple sclerosis. The kind of early that happens before you're even diagnosed. And we also talk about MS diagnosis and care. Dr. Barry Singer is the director and founder of The MS Center for Innovations in Care at Missouri Baptist Medical Center. He is an Associate Professor of Clinical Neurology at Washington University School of Medicine. Dr. Singer earned his undergraduate degree from Duke University and his medical degree from Columbia University College of Physicians and Surgeons. He completed neurology residency at New York Hospital-Cornell University and a neuroimmunology fellowship at the National Institutes of Health. He has been an investigator in greater than 35 multiple sclerosis trials focused on new therapeutic options including remyelination. He serves on the Board of Directors of the Multiple Sclerosis Association of America since February 2016 and has a position on its executive committee. His award-winning MS patient education website www.mslivingwell.org started in 2007 has been a valuable resource in 200 countries. Dr. Singer is the host of the MS Living Well podcast. Connect w/ Dr. Singer: X (Twitter) - @drbarrysinger Additional Resources: https://www.doctorgretchenhawley.com/insider Reach out to Me: hello@doctorgretchenhawley.com Website: www.MSingLink.com Social: ★ Facebook: https://www.facebook.com/groups/mswellness ★ Instagram: https://www.instagram.com/doctor.gretchen ★ YouTube: https://www.youtube.com/c/doctorgretchenhawley?sub_confirmation=1 → Game Changers Course: https://www.doctorgretchenhawley.com/GameChangersCourse → Total Core Program: https://www.doctorgretchenhawley.com/TotalCoreProgram → The MSing Link: https://www.doctorgretchenhawley.com/TheMSingLink

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#097: AFAF with Marissa Cirbo on Communicating Amidst Chronic Illness

Play Episode Listen Later Mar 26, 2024 39:59

Join us for a special episode of Asking for a Friend with TalkDoc as we delve into the world of Multiple Sclerosis (MS) in honor of MS Awareness Month. Our guest, Marissa Cirbo, bravely shares her personal journey with MS, shedding light on the challenges and triumphs she has faced since her diagnosis in 2022. Marissa takes us back to the beginning, recounting the unusual symptoms that first appeared after a trip to Mexico and the journey of discovery that followed. She discusses the frustrating experience of being initially misdiagnosed and the emotional rollercoaster of shock and grief upon receiving the correct diagnosis of MS. Throughout our conversation, Marissa eloquently navigates the complex medical maze she encountered and shares valuable insights into self-advocacy and finding a support network. One of the key takeaways from our discussion is the concept of MS as a "snowflake disease," highlighting the unique experiences and challenges that each individual with MS faces. Marissa's story emphasizes the importance of MS Awareness Month in raising awareness about these complexities, particularly the often invisible symptoms that can be so difficult to communicate. We also explore the impact of chronic illness on relationships, emphasizing the need for open and honest communication. Marissa shares practical advice for those who are newly diagnosed with MS and their families, including tips on setting boundaries and increasing self-awareness in communication. Throughout the episode, Marissa's resilience and proactive approach to managing her MS journey shine through, including her involvement in a support group for newly diagnosed individuals. Join us as we discover hope, healing, and meaningful connections amidst the challenges of chronic illness, and learn valuable communication strategies from Marissa's inspiring story. Music by epidemic sound. SHOW NOTES: Experts : National MS Society, Multiple Sclerosis Association of America Resources/Links: National Multiple Sclerosis Society https://www.nationalmssociety.org/ The National MS Society's vision is: A World Free of MS. The Society's mission is: We will cure MS while empowering people affected by MS to live their best lives. Multiple Sclerosis Association of America (MSAA) https://mymsaa.org/ The Multiple Sclerosis Association of America (MSAA) is a leading resource for the entire MS community, improving lives today through vital services and support. Can Do MS: https://cando-ms.org/ Free programs and resources help people living with multiple sclerosis and their care partners make each day the best it can be. Learn how MS can impact your life, find motivation and personalized guidance to overcome challenges and build a positive support network. Lived Health: https://www.livedhealth.org/ A free, patient-led online video resource shining light on long-term health conditions. We guide fellow patients through diagnosis, treatment and lifestyle.

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EMPOWERING THE MS COMMUNITY | GINA MURDOCH

Free Thinking with Montel

Play Episode Listen Later Mar 26, 2024 32:39

Join Montel Williams on an inspiring new episode of Free Thinking with Montel as we explore the vital work of the Multiple Sclerosis Association of America (MSAA). Montel is exceptionally proud to highlight the MS community and welcomes a notable guest, Gina Murdoch, President, and CEO of the MSAA. With her leadership, the MSAA has been at the forefront of supporting individuals affected by MS through various services and resources.This episode offers a deep-dive into the MSAA's mission, their initiatives during MS Awareness Month, and winning strategies that empower those living with MS. Learn about the latest advancements in treatment, the significance of mental health support, and what makes MSAA stand out among similar organizations.Montel also shares his personal connection and excitement as the keynote speaker at the upcoming MSAA Women of Action luncheon in Atlanta, providing a platform to contribute to the organization's dynamic efforts.Gina Murdoch brings with her a wealth of knowledge, a passion for advocacy, and a message of hope that resonates with individuals and families affected by MS. Tune in to hear about the powerful and progressive steps being taken in research, community support, and education.Whether you're part of the MS community, an advocate for chronic illness awareness, or simply a fan of engaging discussions with a positive impact, this episode is not to be missed.Stick around until the end for all the details on how to get involved, support the MSAA's cause, and participate in their upcoming events. Montel reminds us of the importance of community, resilience, and staying informed.Remember to check out mymsaa.org for more information and don't miss the opportunity to join Montel at the Women of Action luncheon for a day of empowerment and fellowship.Listen to this compelling episode for guidance, inspiration, and actionable insights in our collective effort to support the MS community.

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157. How to Manage MS Spasticity w/ Dr. Barry Singer

Move It or Lose it - The Podcast

Play Episode Listen Later Dec 6, 2023 25:00

On today's episode, we talk about symptom management for spasticity in addition to the different types of spasticity and similar symptoms. This episode is chock full of his best recommendations for therapies and medications. Dr. Barry Singer is the director and founder of The MS Center for Innovations in Care at Missouri Baptist Medical Center. He is an Associate Professor of Clinical Neurology at Washington University School of Medicine. Dr. Singer earned his undergraduate degree from Duke University and his medical degree from Columbia University College of Physicians and Surgeons. He completed neurology residency at New York Hospital-Cornell University and a neuroimmunology fellowship at the National Institutes of Health. He has been an investigator in greater than 35 multiple sclerosis trials focused on new therapeutic options including remyelination. He serves on the Board of Directors of the Multiple Sclerosis Association of America since February 2016 and has a position on its executive committee. His award-winning MS patient education website www.mslivingwell.org started in 2007 has been a valuable resource in 200 countries. Dr. Singer is the host of the MS Living Well podcast. Dr. Barry Singer's website:https://www.mslivingwell.org/ MS Living Well with Barry Singer MD on Apple Podcasts HERE MS Living Well with Barry Singer MD on Spotify: https://open.spotify.com/show/6uIJrnioqBBzutks26bZth Additional Resources: https://www.doctorgretchenhawley.com/insider Reach out to Me: hello@doctorgretchenhawley.com Website: www.MSingLink.com Social: ★ Facebook: https://www.facebook.com/groups/mswellness ★ Instagram: https://www.instagram.com/doctor.gretchen ★ YouTube: https://www.youtube.com/c/doctorgretchenhawley?sub_confirmation=1 → Game Changers Course: https://www.doctorgretchenhawley.com/GameChangersCourse → Total Core Program: https://www.doctorgretchenhawley.com/TotalCoreProgram → The MSing Link: https://www.doctorgretchenhawley.com/TheMSingLink

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Episode 093 - MS Warrior Antonio Perez

Play Episode Listen Later Sep 6, 2023 26:48

One of my favorite things about doing this podcast is meeting young people who are taking on MS and using all of the tools at their disposal to shed light on this crappy disease.Antonio Perez was diagnosed with Primary Progressive MS (PPMS) in 2022. As a young queer man, he was disappointed by the lack of LGBTQIA+ voices within the MS community. So Antonio uses TikTok to talk about his experiences and raise awareness about Multiple Sclerosis, a condition that can affect anybody. In this conversation, we talk about Antonio's diagnosis journey, his advocacy work, and the exciting opportunities that are coming up for him. Although his diagnosis has had a profound impact on his entire life, Antonio is still upbeat and hopeful. He wants to demonstrate to others that life goes on no matter what challenges they may face.Links and resources:Connect with Antonio on TikTok, Facebook, and InstagramRead about Antonio on the BelongMS websiteListen to Episode 90 of the Move It Or Lose It podcast: Address MS Visit the Multiple Sclerosis Association of America and the This Is MS Forums Find out more about the DMAT Fitness Training programIf you're interested in having Kathy speak at your event, learn more hereYou can find Kathy Chester at:msdisrupted@gmail.comdisruptfitnessgym@gmail.com moveitorloseit109@gmail.com Connect with @msdisrupted on Instagram, Facebook, TikTok Here are some additional products that help Kathy deal with beating the Heat and Migraines. Take advantage of the coupon code.Koldtec - Cool Head WrapKOLD10To save $10 off every item in-store.2 items = $20 savings3 items = $30 savingshttps://www.koldtec.com/ Cold bean bag Releafpack15% discount use code Disrupt15https://www.releafpack.com

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Being Diagnosed with Multiple Sclerosis

MS Living Well: Key Info from Multiple Sclerosis Experts

Play Episode Listen Later May 30, 2023 32:22

Trying to confirm if you have multiple sclerosis can be a frustrating process. Dealing with a new diagnosis a MS can be overwhelming. Julian Gamboa and Dr. Jakai Nolan shed light on a positive path forward living with multiple sclerosis. Julian Gamboa shares his first symptoms of multiple sclerosis including spinning sensation and double vision. He had substantial obstacles and setbacks in being diagnosed including a prolonged hospitalization. After being in a very low place, Julian rallied with the support of others including his family. He conveys how he eventually obtained superb MS care and utilizing his social media guru skills to help others being diagnosed with MS. Dr. Jakai Nolan opens up about her own unique insights on being diagnosed with multiple sclerosis since she is both a neurologist specializing in multiple sclerosis and a person living with MS. As she shares her own personal story, she reviews key symptoms suggestive of MS and the importance of advocating for prompt evaluation to prevent a delay in diagnosis and treatment. Dr. Nolan covers treatment selection, mental health concerns and lifestyle modifications for someone recently diagnosed. Barry Singer MD, Director of The MS Center for Innovations in Care, interviews: Julian Gamboa is the Social Media Director for Maximum Effort, supporting brands affiliated with Ryan Reynolds including Mint Mobile, Aviation Gin and Wrexham AFC. He was the former senior marketing and social media manager at Adweek. He serves on the Board of Directors of the Multiple Sclerosis Association of America. Dr. Jakai Nolan is a neurologist specializing in multiple sclerosis in Villa Rica, Georgia and Endowed Neurology Chair for Tanner Medical Center. She received her undergraduate degree from Vanderbilt University, a Master's degree in Public Health at Emory University and her medical degree from Philadelphia College of Osteopathic Medicine, Georgia Campus. Dr. Nolan completed a MS fellowship at OhioHealth.

Her Response To A Multiple Sclerosis Diagnosis.

WBGL Community Matters

Play Episode Listen Later Mar 16, 2023 15:01

DeAnna Clark discovered she had Multiple Sclerosis at the age of 40. A few years later she suffered a stroke. She felt God had allowed these things in her life and asked Him what she should do to help others. DeAnna now serves as a Volunteer and District Leader for the Multiple Sclerosis Association, where she works to provide advocacy and help for people with MS and other disabilities.

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Episode 46 – Taking on real-life MS with Tyler Campbell

A Couple Takes on MS

Play Episode Listen Later Feb 8, 2023 50:51

We can't say enough about Tyler Campbell and the impact he is having on us and members of the Multiple Sclerosis community. You need to hear him for yourself. We are so honored to share with you in this podcast a lively heartfelt conversation we had with Tyler – an author, public speaker, MS ambassador and advocate – who is using his stories and experiences to empower people across the globe. Join us as we chat with Tyler about everything from what he wants people to remember most about who he is to how he is doing since he was diagnosed with MS in 2007 and why his MS diagnosis turned him toward rather than away from his faith. Plus, listen as he reads an excerpt from his Amazon bestselling book, The Ball Came Out, for our podcast segment MS In Their Voices. Here are the links we reference for you to follow up on: • Multiple Sclerosis Association of America's Improving Lives Benefit – The ninth annual MSAA event, which Tyler will serve as the emcee, that helps the organization to directly impact the lives of people living with MS. • 7 Questions with A Couple featuring Tyler Campbell – A 2021 post on our blog where we asked Tyler 7 questions about his life with MS. • Real Lyfe Reel Talk with TC Speaks – The #1 radio show Saturdays on 104.9 FM The Horn in Austin, Texas, that Tyler hosts. • The Ball Came Out: Life From The Other Side Of The Field – Learn more about Tyler's bestselling book.

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Episode 37 – Forever newly diagnosed with MS

A Couple Takes on MS

Play Episode Listen Later Sep 8, 2022 32:31

More than 22 years have passed since the first time we each heard the life-altering phrase, “You have Multiple Sclerosis.” That's more than two decades, so conversations about being newly diagnosed with MS really have nothing to do with either one of us, right? Not so fast, we say. Join us as we take a matter-of-fact honest look into the realities of living with an ever-changing unpredictable disease of the central nervous system. See why – with the experiences we've had – we conclude that no matter how long you have lived with MS, in many ways you forever can consider yourself newly diagnosed. Here are the links to helpful MS resources we reference for you to follow up on: • nmss.org – National Multiple Sclerosis Society • msfocus.org – Multiple Sclerosis Foundation • mymsaa.org – Multiple Sclerosis Association of America • msviews.org – MS Views and News • realtalkms.com – Real Talk MS podcast • bezzyms.com – MS peer support community • mymsteam.com – MS peer support community • care.twill.health – MS health information

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56. Fatigue, Pain, and Bladder Management w/ Dr. Barry Singer

Play Episode Listen Later Apr 20, 2022 24:10

On today's episode, I'm interviewing Dr. Barry Singer - He is an MS Neurologist as well as director and founder of the MS Center for Innovations in Care at Missouri Baptist Medical Center. He has been an investigator in more than 35 multiple sclerosis trials focused on new therapeutic options including remyelination. He really knows his stuff and today, we talk about symptom management for fatigue, pain, and bladder. This episode is chock full of his best recommendations for therapies and medications. You'll want to take notes or come back to this episode for future reference. Dr. Barry Singer is the director and founder of The MS Center for Innovations in Care at Missouri Baptist Medical Center. He is an Associate Professor of Clinical Neurology at Washington University School of Medicine. Dr. Singer earned his undergraduate degree from Duke University and his medical degree from Columbia University College of Physicians and Surgeons. He completed neurology residency at New York Hospital-Cornell University and a neuroimmunology fellowship at the National Institutes of Health. He has been an investigator in greater than 35 multiple sclerosis trials focused on new therapeutic options including remyelination. He serves on the Board of Directors of the Multiple Sclerosis Association of America since February 2016 and has a position on its executive committee. His award-winning MS patient education website www.mslivingwell.org started in 2007 has been a valuable resource in 200 countries. Dr. Singer is the host of the MS Living Well podcast. Dr. Singer's Website: www.mslivingwell.org Twitter: @drbarrysinger MS Living Well podcast: Apple Podcast https://apple.co/3N4DDWU Spotify https://spoti.fi/3tpkxTx Additional Resources: https://www.doctorgretchenhawley.com/insider Reach out to Me: Gretchen@DoctorGretchenHawley.com Website: www.MSingLink.com Social: ★ Facebook: https://www.facebook.com/groups/mswellness ★ Instagram: https://www.instagram.com/doctor.gretchen ★ YouTube: https://www.youtube.com/c/doctorgretchenhawley?sub_confirmation=1 → Game Changers Course: https://www.doctorgretchenhawley.com/GameChangersCourse → Total Core Program: https://www.doctorgretchenhawley.com/TotalCoreProgram → The MSing Link: https://www.doctorgretchenhawley.com/TheMSingLink

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3 M’s of MS: Mangia, Microbiome, and Molecules – Episode 9

Play Episode Listen Later Mar 18, 2022 61:48

The Multiple Sclerosis Association of America is pleased to present our podcast episode on the “3 M's of MS: Mangia, Microbiome, and Molecules.” Hosted by Alexis Crispino Kline, Director of Mission Delivery and Grants Management for MSAA, this program is part of MSAA's 2022 MS Awareness Month theme: Shaping the MS Experience. Our guest, Andrew Woo, MD, PhD, is a private practice neurologist at Santa Monica Neurological Consultants and an MSAA Board Member. In this episode, Dr. Woo shares his thoughts on what he calls the “3 M's of MS: Mangia, Microbiome, and Molecules” by discussing supplements and diets that have been studied or claimed to help MS, as well as other related autoimmune conditions.

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44. Aging with MS w/ Cathy Chester

Play Episode Listen Later Feb 23, 2022 32:48

Join Dr. Gretchen this week as she chats with Cathy Chester, a true icon & advocator in the MS community. In this episode Cathy shares her insights into how far the knowledge & treatment of MS has come since her own diagnosis, and how she has adapted along with way. Diagnosed with multiple sclerosis in 1986 Cathy has been advocating for the MS community since then, prior to the internet or any approved MS medications. She is a certified health advocate and patient leader and created an award-winning blog, An Empowered Spirit to empower, inspire, and educate the MS community. Cathy was a regular contributor for several MS and health websites and has served as a consultant on patient panels for many pharmaceutical and health companies. Her unique story has been featured in industry newsletters and magazines that include Katie Couric's Wakeup Call, Reader's Digest, Health.com, and Woman's Day, and her writing has appeared in various media outlets that include The Huffington Post, National Multiple Sclerosis Society, Multiple Sclerosis Association of America, Everyday Health, PatientsLikeMe, BetterAfter50, Erma Bombeck Writers' Workshop, The Mighty and Women at Woodstock. Cathy has been featured in several videos and on the radio for PBS, Harvard Radio, Health.com, The Consortium of Multiple Sclerosis Centers, Touch Medical Media, Healthline, and WHOA! Network. Among other awards she's received she's proudest to be awarded the Lifetime Achievement Award from WEGO Health. Find "An Empowered Spirit" (Cathy's Award Winning Blog) at AnEmpoweredSpirit.com Additional Resources: https://www.doctorgretchenhawley.com/insider Reach out to Me: Gretchen@DoctorGretchenHawley.com Website: www.MSingLink.com Social: ★ Facebook: https://www.facebook.com/groups/mswellness ★ Instagram: https://www.instagram.com/doctor.gretchen ★ YouTube: https://www.youtube.com/c/doctorgretchenhawley?sub_confirmation=1 → Game Changers Course: https://www.doctorgretchenhawley.com/GameChangersCourse → Total Core Program: https://www.doctorgretchenhawley.com/TotalCoreProgram → The MSing Link: https://www.doctorgretchenhawley.com/TheMSingLink

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Bonus Episode: MS In the 21st Century -- Challenges of Communicating About MS Progression With Your Healthcare Provider

Make a Difference Casters

Play Episode Listen Later Jan 19, 2022 13:32

This special episode of RealTalk MS is sponsored by EMD Serono and MS in the 21st Century. In this special episode of RealTalk MS, we're talking with Pieter van Galen and Amanda Montague about that sometimes-challenging conversation with your healthcare provider about MS progression. We're also highlighting My MS Roadmap, a free tool designed to make conversations with your healthcare provider easier by offering clear and easy to understand definitions of the complex language used to describe multiple sclerosis. Amanda Montague is the Chief Mission Officer for the Multiple Sclerosis Association of America and Pieter van Galen is a freelance trainer and consultant based in Belgium. Pieter has been living with MS since being diagnosed in 2006. Both Amanda and Pieter are active members of the MS in the 21st Century initiative. To learn more about MS in the 21st Century, please visit www.msinthe21stcentury.com.

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Multiple Sclersosis Association of America

Play Episode Listen Later Oct 22, 2021 43:08

I had the great honor of interviewing Gina Murdoch. She is so experienced in the world of non profits and had switched her attention to become the CEO of the Multiple Sclerosis Association of America.In this episode we focused on1. What is M.S and what we need to understand?2. MSAA's focus on practical life improvement 3. MRI program that has exceptionally changed lives.4. How we can be a help to those with M.S.To learn more and help their cause go tohttps://mymsaa.org/Gina Ross Murdoch is a seasoned executive in nonprofit management and currently serves as President and CEO of the Mulple Sclerosis Association of America (MSAA), a nationalnonprofit organizaon dedicated to improving lives today for the MS community. Since joining MSAA in early 2016, Ms. Murdoch's accomplishments have included expanding the impact of MSAA's mission, broadening, MSAA's national Board of Directors to include senior-executive level corporate and medical-industry experts, and increasing the organization's gross income. Additional achievements include creasing partnerships to help bridge the gap between employers and their employees impacted by MS, in addition to further developing MSAA's advocacy initiatives, bringing the patient voice to state and federal policy issues. She also currently serves as the volunteer Treasurer for the MS Coalition (MSC), a collaborative network of nine organizations dedicated to the MS community. Previously, Ms. Murdoch held leadership posions with chapters of the Leukemia and Lymphoma Society, the American Diabetes Association, and the National Multiple Sclerosis Society. An active member of the community, she has held several town positions and volunteers for her college alma mater, Drew University.Support the show (https://www.patreon.com/madcasters)

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38: Advancing MS Care and Awareness

NeurologyLive Mind Moments

Play Episode Listen Later Jun 4, 2021 17:29

Welcome to the NeurologyLive Mind Moments podcast. Tune in to hear leaders in neurology sound off on topics that impact your clinical practice.In this episode, we spoke with Barry Hendin, MD, clinical professor, University of Arizona; director, Multiple Sclerosis Clinic, Banner University Medical Center; and chief medical officer, Multiple Sclerosis Association of America. He shared his perspective on the recent World MS Day on May 30, the impact awareness efforts have had on care, and how treatment has evolved during his time as an MS physician. Thanks for listening to the NeurologyLive Mind Moments podcast. To support the show, be sure to rate, review, and subscribe wherever you listen to podcasts. For more neurology news and expert-driven content, visit neurologylive.com.

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We have to know our history to change it. A conversation with Christie VanHorne

Community Possibilities

Play Episode Listen Later Apr 27, 2021 38:26

Christine VanHorne is a public health consultant, speaker, trainer, facilitator, patient advocate and a fearless advocate for race equity and health disparities. I met Christie in Heather Sager's Speak Up to Level Up Class. Her journey from undergrad student majoring in Genocide studies, to the Peace Corps, to Public Health, will motivate you. We have a great conversation about how white people must speak up against racism, working in communities, speaking to your doctor and so much more. It is the stories people have to share that motivate Christie. Enjoy! Learn about Christie:Christine is the President of CVH Consulting and founder of How to Talk to Your Doctor, a project that aims to address health literacy with patients and health professionals. As a consultant, Christie develops health curriculum, leads train-the-trainers for nonprofit and healthcare professionals, and facilitates community coalitions and working groups to improve health outcomes. With 20 years of experience in the health sector, two masters (Education / Public Health), service in the Peace Corps, and appearances on numerous health-focused podcasts, Christie is passionate about bringing her expertise where it is most needed. Christie has consulted for organizations such as the Hemophilia Federation of America, Institute for Healthcare Improvement, National Environmental Health Association, Malcolm X College, Multiple Sclerosis Association of America, and Planned Parenthood. She lives in the beautiful Hudson Valley, NY with her husband and two dogs. Get in touch with Christie:Instagram: @Howtotalktyourdoctor@christie_publichealth LinkedInFlow Podcast Be sure and join her History of Health Disparities and Current Impacts class next time it opens. Here is the resource Christie talked about: https://www.kff.org/coronavirus-covid-19/issue-brief/implications-of-covid-19-for-social-determinants-of-health/Get in touch with Ann:communityevaluationsolutions.comCoalition or nonprofit leader stuck on how to get started making a difference in your community? Download my free guide! Like what you heard? Please like and share wherever you get your podcasts! Connect with Ann: Community Evaluation Solutions How Ann can help: · Support the evaluation capacity of your coalition or community-based organization. · Help you create a strategic plan that doesn't stress you and your group out, doesn't take all year to design, and is actionable. · Engage your group in equitable discussions about difficult conversations. · Facilitate a workshop to plan for action and get your group moving. · Create a workshop that energizes and excites your group for action. · Speak at your conference or event. Have a question or want to know more? Book a call with Ann .Be sure and check out our updated resource page! Let us know what was helpful. Community Possibilities is Produced by Zach Price Music by Zach Price: Zachpricet@gmail.com

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How to Talk to Your Doctor | Christie VanHorne

Fempower Health

Play Episode Listen Later Mar 29, 2021 36:03

Patients and doctors must collaborate for a successful office visit and ongoing relationship. Public health expert, Christie VanHorne, shares important tips for both patients and doctors on how to successfully navigate the conversation that neither were trained on how to do.In this episode, Christie covers:The history behind why women tend to be dismissedHow to find a doctor to meet your needsHow to prepare for your doctor appointmentsHow to have the right conversation to optimize your appointmentsLessons for both patients and doctorsWhat you can do if you have a bad appointmentNOTE: I made a reference to 2 types of HPV. To clarify, there are multiple HPV types but 2 that indicate a high risk of cervical cancer.Referenced in the podcast & related episodes:Courses for patients, parents, and professionalsFind a DoctorPrepare for Doctor AppointmentDr Alyson McGregor | Sex Matters in Healthcare: What Women Need to Know and Do About ItAimee Raupp | It’s NOT Your Genetics, It’s Your Lifestyle: Unpacking the Science of EpigeneticsDr Jill Krapf | Pain with Sex? What You Can Do About ItHow Healing Works by Wayne JonasPeriod Repair Manual by Lara BridenBody Belief by Aimee RauppAnd be sure to:Follow Fempower Health on Instagram for updates and tips.Subscribe to the podcast and tell your friends!Shop the Fempower Health store, which has many products discussed on the podcast.Sponsors:ReceptivaDx the sponsor of all of Season 2. Provide code FEMPOWER-HEALTH for $75 off.More About Christie VanHorneChristie is the President of CVH Consulting and founder of How to Talk to Your Doctor, a project that aims to address health literacy with patients and health professionals. As a consultant, Christie develops health curriculum, leads train-the-trainers for nonprofit and healthcare professionals, and facilitates community coalitions and working groups to improve health outcomes. With 20 years of experience in the health sector, two masters (Education / Public Health), service in the Peace Corps, and appearances on numerous health-focused podcasts, Christie is passionate about bringing her expertise where it is most needed. Christie has consulted for organizations such as the Hemophilia Federation of America, Temple University, National Environmental Health Association, Malcolm X College, Multiple Sclerosis Association, United Way, and Planned Parenthood. She lives in the beautiful Hudson Valley, NY with her husband and two dogs. **The information shared by Fempower Health is not medical advice but for information purposes to enable you to have more effective conversations with your doctor. Always talk to your doctor before making health-related decisions. Contains affiliate linksSupport the show (https://www.patreon.com/fempowerhealth)

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MS Uncensored: What It's Like Living with Multiple Sclerosis

Joy in the Journey Podcast

Play Episode Listen Later Mar 10, 2021 44:12

March is Multiple Sclerosis (MS) Awareness Month and on this week's episode, I'm joined by Damian Washington and Emily Zipps to have an unfiltered discussion about living with MS. Our experiences with MS are unique but mental and emotional struggles are similar and we're dishing on it all. Listen in as we share what we miss most about our lives before MS, experiences with discrimination and exchange laughs about moving through the world with "holes in our brain." To learn more about MS Awareness Month, visit the Multiple Sclerosis Association of America.To get involved, help raise awareness or donate, check out the National Multiple Sclerosis Society.To Connect with DamianWebsite: https://www.damianwashington.com/YouTube: https://www.youtube.com/channel/UCSJgIvbOc4diFBF2QJiYqCQInstagram: @DamianWashingtonTo Connect with ZippsInstagram: @EmilyZippsTwitter: https://twitter.com/emilyzippsIf you have podcast feedback or would like to be a guest on the show, email me at JennaDMorrow@gmail.com.Check me out at: JennaDMorrow.comFollow me on Instagram: @JennaDMorrow

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Caring for the Care Partner – Episode 7

Play Episode Listen Later Mar 2, 2021 23:12

The Multiple Sclerosis Association of America is pleased to present our podcast episode on “Caring for the Care Partner.” Hosted by Peter Damiri, Senior Director of Content Development for MSAA, this program is part of MSAA’s 2021 MS Awareness Month theme: Improving Mental Health and Wellness. Our returning guest Dr. Amy Sullivan is a Board Certified, Staff Clinical Health Psychologist and the Director of Behavioral Medicine at the Mellen Center for MS Treatment and Research at the Cleveland Clinic. Dr. Sullivan talks about the often overlooked but important physical and emotional needs of care partners and provides practical tips and suggestions on ways to avoid care partner burnout. This episode was produced and recorded at Gradwell House Recording in Haddon Heights, NJ. Music provided by The New Anxiety (Tim Recuber and John Masino III).

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Vampire and Wolverines supporting Multiple Sclerosis

Under the Cowl of MS

Play Episode Listen Later Dec 9, 2020 30:37

EP70 Vampirella vol4 #1, Vampirella vol5 #1, Die!namite #1, Vampirella vs Re-Animator #1, Wolverine Black, White & Blood #1. Ways to support MSAA the Multiple Sclerosis Association of America for the Holidays and beyond, Gaming for MS. A recipe from Fox 6 the Cooking Mom, Cranberry Chicken Bake. --- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app --- Send in a voice message: https://anchor.fm/kevin-kleinhans/message Support this podcast: https://anchor.fm/kevin-kleinhans/support

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Multiple Sclerosis Association of America's Efforts to Mark MS Awareness Month

MS News & Perspectives

Play Episode Listen Later Mar 16, 2020 5:17

Multiple Sclerosis News Today columnist, Jenn Powell discusses the Multiple Sclerosis Association of America's efforts to mark Multiple Sclerosis Awareness Month through hosting a wealth of wellness activities. Are you interested in learning more about Multiple Sclerosis? If so, please visit https://multiplesclerosisnewstoday.com/

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Better Symptom Management through Wellness – Episode 6

Play Episode Listen Later Mar 13, 2020 29:02

The Multiple Sclerosis Association of America is pleased to present our podcast episode on “Better Symptom Management through Wellness.” Hosted by Peter Damiri, Vice President of Programs and Services for MSAA, this program is part of MSAA’s 2020 MS Awareness Month theme: The Mind, Body, and MS Connection. Our guests Mary Rensel, MD and Amy Sullivan, PsyD of the Cleveland Clinic’s Mellen Center for MS talk about brain health and provide helpful strategies to improve MS care through nutrition, exercise, mindfulness, and overall healthy living. Dr. Rensel is an MS neurologist and Director of the Wellness Program, and Dr. Sullivan is a psychologist and Director of Behavioral Medicine, Research and Training.

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A Little is a Lot When Exercising with MS – Episode 5

Need to Know with Sam & John

Play Episode Listen Later Mar 2, 2020 27:13

The Multiple Sclerosis Association of America is pleased to present our podcast episode on “A Little is a Lot When Exercising with MS.” Hosted by Andrea Griffin, Vice President of Communications and Marketing for MSAA, this program is part of MSAA’s 2020 MS Awareness Month theme: The Mind, Body, and MS Connection. Our guest, physical therapist Brian Hutchinson, shares his insights on the importance of exercise and physical activity in managing MS. Brian is an MS-certified specialist and the Director of the Multiple Sclerosis Achievement Center in Sacramento, California.

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The Impact of Multiple Sclerosis: The Effect of Chronic Diseases Like MS on Your Organization

MS Work Space Podcast

Play Episode Listen Later Oct 24, 2019 16:54

In Episode 1, our host Christine Porath explores the impact of MS on various aspects of workplace productivity with Gina Murdoch–President and CEO of the Multiple Sclerosis Association of America. The discussion demonstrates how simple it can be to work together to provide valued employees with MS the resources they need to continue to do their jobs effectively. Tune in to get the tools and resources your organization can use to ensure you're implementing best practices when it comes to MS in the workspace.

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MS News Update - MS Research

Play Episode Listen Later Oct 15, 2019 24:43

In this episode, we chat about the Multiple Sclerosis Association of America’s (MSAA) September 2019 Research Update. There are several studies we discuss as well as a recent study shared by the MS Society regarding myelin repair and why it may fall short. To read more about the MS Society’s update, check out New Study Shows Why Myelin Repair May Fall Short in MS.

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The Impact of Nutrition in Multiple Sclerosis – Episode 4

Need to Know with Sam & John

Play Episode Listen Later Jun 26, 2019 33:25

The Multiple Sclerosis Association of America is pleased to present our podcast episode on ““The Impact of Nutrition in Multiple Sclerosis.” Hosted by Peter Damiri, Vice President of Programs and Services for MSAA, this program is part of MSAA’s series on MS and the Family, spotlighting healthy lifestyle and wellness activities. Our guest, Dr. Olga Thon, shares her insights on popular vitamins and supplements, various diets that affect MS, and suggestions for effective exercises and overall wellness strategies to help better manage multiple sclerosis. Dr. Thon is the director of the Multiple Sclerosis and Neuroimmunology Center at Drexel University College of Medicine in Philadelphia.

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MS News Update - MSAA MS Research Update 2019 Edition

Play Episode Listen Later Jun 11, 2019 18:20

In this MS News Update, we discuss the Multiple Sclerosis Association of America’s (MSAA) 2019 edition of its MS Research Update. “The publication focuses on research related to approved and experimental medications and therapies for the long-term treatment of multiple sclerosis.” Read all of the details in the MS Research Update.

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The Many Faces of MS: Exploring Diversity Within Multiple Sclerosis – Episode 3

Play Episode Listen Later Jun 4, 2019 32:38

The Multiple Sclerosis Association of America is pleased to present our podcast episode on “The Many Faces of MS.” Hosted by Peter Damiri, Vice President of Programs and Services for MSAA, this program is part of MSAA’s series on MS and the Family, spotlighting the topic of diversity within MS. Our guest, Dr. EJ Gettings, shares his insights on multiple sclerosis and its impact on various patient populations. Dr. Gettings is an Assistant Professor of Neurology at Temple University in Philadelphia.

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Episode 90: The MS Association of America with President & CEO Gina Murdoch

Play Episode Listen Later May 20, 2019 33:07

The Multiple Sclerosis Association of America, or MSAA, provides programs and resources designed to improve the lives of people affected by MS. Whether it's financial assistance for an MRI exam, a new computer, mobility equipment, or even a cooling vest, the MSAA can help. My guest today is Gina Murdoch, the President and CEO of the MSAA, and we're talking about the organization's almost 50-year history, their shared management philosophy of living with MS, and we're taking a deeper dive into into some of their remarkable programs. We're also talking about the Progressive MS Alliance Scientific Steering Committee Meeting that begins tomorrow in Copenhagen, Denmark. You'll hear about the Patient 360 meeting that EMD Serono hosted last week in Washington, D.C., and I'll tell you why that meeting was so special to me. We're talking about the just announced $100,000 research grant to investigate the challenges faced by people of color who are living with MS and their caregivers. You'll learn about the special search engine that matches MS patients with financial support for disease-modifying therapy. We'll tell you about 2 new programs from Can-Do MS, focused on young adults who are living with MS and people who are living with secondary progressive MS. And you'll find out how you can be my special guest on the 100th episode of RealTalk MS. We have a lot to talk about. Are you ready for RealTalk MS??! Progressive MS Alliance Scientific Steering Committee Meeting in Copenhagen :22 EMD Serono Hosts Patient 360 Meeting 2:27 Accelerated Cure Project & Us Against Alzheimer's Receive $100,000 Grant to Study Challenges Faced by People of Color Living with MS & Alzheimer's Disease 6:07 MAT Can Connect You to Financial Support for Disease-Modifying Therapy 7:53 Can-Do MS Announces Programs for Young Adults Living with MS and People Living with Secondary Progressive MS 9:58 Finalists Announced for Lyfebulb-Celgene Addressing Unmet Needs in MS: Innovation Challenge 12:22 My Interview with MSAA's Gina Murdoch 16:13 ___________ ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.comPhone: (310) 526-2283 ___________ LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com International Progressive MS Alliance Multiple Sclerosis Association of America MAT (Medicine Assistance Tool) Can-Do MS Young Adults Take Charge Program Can-Do MS Secondary Progressive MS Webinar Series Celgene Lyfebulb MS Innovation Challenge Be My Guest on RealTalk MS Episode #100 Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating & Review ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 90 Hosted By: Jon Strum Guest: Gina Murdoch Tags: MS, MultipleSclerosis, MSResearch, ProgressiveMS, CanDoMS, MSAA, EMDSerono, Celgene, Lyfebulb, Caregiving, RealTalkMS

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Spotlighting Care Partner Needs with Lara Krawchuk – Episode 2

Play Episode Listen Later Mar 15, 2019 22:41

The Multiple Sclerosis Association of America is pleased to present our podcast on “Spotlighting Care Partner Needs.” This program is part of MSAA’s 2019 MS Awareness Month campaign on MS and the Family, spotlighting the topic of Care Partners and MS. Our guest, Lara Krawchuk, MSW, LCSW, MPH, shares her insights as well as resources and tips for care partners. Ms. Krawchuk is a licensed clinical social worker, therapist, and wellness educator.

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Exploring Relationships & MS with Miriam Franco – Episode 1

Marilyn Russell's Remarkable Women

Play Episode Listen Later Mar 11, 2019 38:07

The Multiple Sclerosis Association of America is pleased to present our podcast on “Exploring Relationships.” This program is part of MSAA’s 2019 MS Awareness Month campaign on MS and the Family, spotlighting the topic of Relationships and MS. Our guest, Miriam Franco, MSW, PsyD, MSCS, shares her expertise and insights on fostering healthy relationships for couples living with MS. Dr. Franco is a psychologist, social worker, certified guided imagery practitioner, and a multiple sclerosis specialist.

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Remarkable Women 030119-Gina Murdoch-Shelly Fisher

Play Episode Listen Later Mar 1, 2019 29:56

First on the show we meet Gina Murdoch, President & CEO of the Multiple Sclerosis Association of America (MSAA). March is MS Awareness Month so Gina shares the MSAA’s plans for the month as well as all of the free programs and services that they offer the MS Community. For more info, please visit www.mymsaa.org Then we meet Shelly Fisher, an entrepreneur, philanthropist and all around remarkable woman. After being diagnosed with cancer for a second time, she created a business to empower people, and to empower, you need a really strong name – thus, One Tough Bitch (OTB) was established. In midst of the greatest challenges and the ones we face on a daily basis, we can easily forget who we are and the strength we have deep within us. OTB products are something tangible to hold onto. A reminder of your inner power. For more info please visit: www.onetoughbitch.com Shelly is also a philanthropist and created the Herb It Forward Foundation – an organization dedicated to supporting students who despite extreme challenges in their past are hardworking, motivated and driven to make a difference in their communities. For more info visit: www.herbie.com

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Episode 75: MS Risk Factors with Epidemiologist Dr. Farren Briggs

Play Episode Listen Later Jan 28, 2019 29:37

One of the fundamental questions on the minds of just about everyone living with MS is How did I get it? What causes MS? It's a question that's still awaiting a definitive answer. But as we wait for that answer, science is uncovering more and more information about MS risk factors -- the things that can make living with MS better or worse. My guest is Dr. Farren Briggs, an epidemiologist who's focused on the etiology, or the cause of multiple sclerosis, and the risk factors that actually impact the course of the disease for an individual. We're also talking about the Progressive MS Alliance's commitment to including the voice of people living with MS in MS research. We'll tell you about a study that looked at predicting physical disability and cognitive dysfunction in people living with MS. You'll hear about a study that evaluated the facts that are available on the Internet about diet and MS, how online relaxation therapy can improve anxiety and depression, new guidelines from the U.K. for pregnancy and MS, and how shared decision-making can lead to greater adherence to MS disease-modifying therapy. We have a lot to talk about! Are you ready for RealTalk MS?! ___________ Progressive MS Alliance & Patient Engagement in MS Research :23 Predicting Physical Disability & Cognitive Dysfunction in MS 2:16 Diet & MS: A Study of Facts vs Beliefs 3:52 Online Relaxation Training Shown To Be Effective in Reducing Anxiety & Depression Among People Living with Long-Term Neurological Conditions 9:57 Guidelines for Pregnancy & MS in the U.K. 11:58 Shared Decision-Making Leads to Greater Adherence to MS Disease-Modifying Therapy 13:40 My Interview with Dr. Farren Briggs 17:34 Add Your Voice To Our Conversation 28:15 ___________ ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jonstrum@RealTalkMS.com Phone: (310) 526-2283 ___________ LINKSIf your podcast app doesn’t allow you to click on these links, you’ll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating & Review STUDY: Predicting Clinical Progression in Multiple Sclerosis After 6 and 12 Years STUDY: Diet and Multiple Sclerosis: Scoping Review of Web-Based Recommendations STUDY: The Effects of Relaxation Training On Depression and Anxiety In People Living with Long-Term Neurological Conditions UK Consensus on Pregnancy in Multiple Sclerosis: Association of British Neurologists Guidelines STUDY: Impact of Shared Decision-Making on Disease-Modifying Drug Adherence in Multiple Sclerosis ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 75 Hosted By: Jon Strum Guest: Dr. Farren Briggs Tags: MS, MultipleSclerosis, MSResearch, CWRU, MSDiet

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Karolina Dehnhard, American lawyer of Polish descent, awarded by Multiple Sclerosis Association of America

RAMPA Podcasts (English)

Play Episode Listen Later Nov 5, 2018 4:43

Karolina Dehnhard, American lawyer of Polish descent was honored with the Leadership Honoree Award at the annual gala of Multiple Sclerosis Association of America on November 2 in Woodland Park, NJ.

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Episode 40: An MS Activist Is Running for Office with Marques Jones