Podcasts about world ms day

Welcome to the NeurologyLive® Mind Moments® podcast. Tune in to hear leaders in neurology sound off on topics that impact your clinical practice. In this episode, "World MS Day: Raising Awareness, Evolving Care, and Empowering Patients," Taylor Hess, MD, a multiple sclerosis specialist at the Michigan Institute for Neurological Disorders (MIND), shares insights in recognition of World MS Day. She reflects on the importance of raising global awareness for MS, the need for equitable care, and the evolving focus of research and treatment. Dr. Hess discusses underrecognized symptoms like fatigue and cognitive dysfunction, and emphasizes the value of the upcoming diagnostic criteria update in enabling earlier intervention. She highlights key research priorities—including progressive MS, symptom management, and remyelination—and speaks to the importance of holistic, lifestyle-informed care. Finally, she shares advice for clinicians on how to communicate a new MS diagnosis with empathy, clarity, and empowerment. Looking for more multiple sclerosis discussion? Check out the NeurologyLive® Multiple sclerosis clinical focus page. Episode Breakdown: 1:00 – Significance of World MS Day and the importance of global MS awareness 2:05– Commonly recognized vs overlooked MS symptoms in patient care 3:10 – Transitioning to updated MS diagnostic criteria and the need for global provider education 4:15 – Neurology News Minute 6:30 – Research priorities: progressive MS, symptom management, and remyelination strategies 7:35 – The role of lifestyle, risk factor control, and holistic care in MS management 8:50 – Communicating MS diagnosis with empathy, support, and resource guidance The stories featured in this week's Neurology News Minute, which will give you quick updates on the following developments in neurology, are further detailed here: FDA Approves First Autoinjector Form of DHE for Acute Migraine and Cluster Headache FDA Clears Lumipulse Plasma Ratio as First Blood Test for Diagnosing Alzheimer Disease Once-Daily Oral Pill for Obstructive Sleep Apnea Shows Promising Phase 3 Results, Paving Way for FDA Submission Thanks for listening to the NeurologyLive® Mind Moments® podcast. To support the show, be sure to rate, review, and subscribe wherever you listen to podcasts. For more neurology news and expert-driven content, visit neurologylive.com.

Every five minutes, someone somewhere in the world is diagnosed with MS. But getting that diagnosis can be challenging. And the evidence is clear that early intervention makes a difference. The sooner someone can begin a disease-modifying therapy, the better their outcome is going to be. World MS Day is May 30th, and this year, World MS Day is focused on eliminating the obstacles that get in the way of a timely and accurate diagnosis.    I thought World MS Day would be the perfect time to invite Meredith O'Brien to join me to discuss her new book, Uncomfortably Numb 2: An Anthology for Newly-Diagnosed MS Patients. We'll also explain how the drastic cuts to Medicaid funding that were approved by the U.S. House of Representatives will affect hundreds of thousands of people with MS, and how the additional changes made to the Affordable Care Act will leave millions of Americans without health insurance. We're sharing the results of a study that may have identified how B-cells infected by the Epstein-Barr Virus migrate into the brain. And we'll explain why that could be the activity that triggers MS. We'll tell you about a study that makes the case for treating pediatric MS with Ocrevus. And we'll share the results of a study that discovered an association between inflammation-causing molecules and frailty among people with relapsing forms of MS. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: World MS Day   :22 U.S. House of Representatives Vote to Gut Healthcare in America  2:29 Get involved! Become an MS Activist today!  3:38 A research team has demonstrated how EBV-infected B-cells migrate to the brain  4:28 Researchers demonstrate the efficacy of Ocrevus in treating pediatric MS  7:13 Researchers show an association between frailty and an inflammatory molecule  8:57 Meredith O'Brien discusses her new book, Uncomfortably Numb 2: An Anthology for Newly-Diagnosed MS Patients  11:05 Share this episode  24:51 Have you downloaded the free RealTalk MS app?  25:12 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/404 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Become an MS Activist Web: https://nationalmssociety.org/advocacy World MS Day https://worldmsday.org Uncomfortably Numb 2: An Anthology for Newly-Diagnosed MS Patients https://amazon.com/Uncomfortably-Numb-Anthology-Newly-Diagnosed-Patients/dp/1954332580/ref=sr_1_1 STUDY: Epstein-Barr Virus Induces Aberrant B Cell Migration and Diapedesis Via FAK-Dependent Chemotaxis Pathways https://nature.com/articles/s41467-025-59813-z STUDY: Ocrelizumab for Relapsing Pediatric Multiple Sclerosis https://sciencedirect.com/science/article/abs/pii/s2211034825002810 STUDY: Association Between Frailty and Inflammatory Cytokines in Patients with Multiple Sclerosis: A Case-Control Study https://sciencedirect.com/science/article/abs/pii/s1043466625000924 Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 404 Guest: Meredith O'Brien Privacy Policy

Multiple Sclerosis is a long-lasting chronic disease of the central nervous system. It is thought to be an autoimmune disorder, a condition in which the body attacks itself by mistake. MS is an unpredictable disease that affects people differently. Alan Morrissey was joined by a number of male guests who are all living with MS, to share their stories, Dean, John, and Fergal. Alan was then joined by Community Worker with MS Society, John McDonald and HSE Primary Care Social Workers, Nina Dale & Suzanne Leene. A special World MS Day webinar will explore the powerful theme of "My MS Diagnosis" on Thursday, 29th May at 7pm. This event will feature a panel of people living with MS who will share their personal diagnosis stories. Register for free in advance using this link: https://us06web.zoom.us/webinar/register/WN__S2Uhx_7Re-n69uF0qmmmQ Photo(C): Clare FM

Lesley and Brad reflect on Lesley's interview with Nick Hutchison, founder of BookThinkers and author of 'Rise of the Reader.' Discover Nick's inspiring journey from indifference to reading to becoming a passionate advocate for personal development books. Learn practical strategies for reading more effectively, including setting specific, measurable goals and integrating reading into your daily routine. Get actionable tips on how to read 20 books a year and retain valuable information, enhancing your personal and professional growth. If you have any questions about this episode or want to get some of the resources we mentioned, head over to LesleyLogan.co/podcast. If you have any comments or questions about the Be It pod shoot us a message at beit@lesleylogan.co. And as always, if you're enjoying the show please share it with someone who you think would enjoy it as well. It is your continued support that will help us continue to help others. Thank you so much! Never miss another show by subscribing at LesleyLogan.co/subscribe.In this episode you will learn about:Why feeling like an impostor is normal when starting something new.The value of audience engagement and feedback in the creative process.Importance of reading books that address specific problems or build skills.Set SMART goals in retaining and applying knowledge gained from books. Targeted reading to address and solve personal problems effectively.Episode References/Links:OPC Summer Camp - soOPC Summer TourBalanced BodyeLevate 2025 BookThinkers WebsiteBookThinkers InstagramRise of the ReaderThe Four Agreements by Don Miguel Ruiz  If you enjoyed this episode, make sure and give us a five star rating and leave us a review on iTunes, Podcast Addict, Podchaser or Castbox. DEALS! Check out all our Preferred Vendors & Special Deals from Clair Sparrow, Sensate, Lyfefuel BeeKeeper's Naturals, Sauna Space, HigherDose, AG1 and ToeSox Be in the know with all the workshops at OPCBe It Till You See It Podcast SurveyBe a part of Lesley's Pilates MentorshipFREE Ditching Busy Webinar Resources:Watch the Be It Till You See It podcast on YouTube!Lesley Logan websiteBe It Till You See It PodcastOnline Pilates Classes by Lesley LoganOnline Pilates Classes by Lesley Logan on YouTubeProfitable Pilates Follow Us on Social Media:InstagramFacebookLinkedIn  Episode Transcript:Brad Crowell 0:00  He always asks them, "If I paid you $10,000, if you read this book in the next month, would you do it?" And of course they would say, "yeah, yeah, yeah, I would totally do it." And he said, "Great, I've caught you in my trap." And the trap is obviously prioritization. We don't prioritize reading, so we don't read, right?Lesley Logan 0:24  Welcome to the Be It Till You See It podcast where we talk about taking messy action, knowing that perfect is boring. I'm Lesley Logan, Pilates instructor and fitness business coach. I've trained thousands of people around the world and the number one thing I see stopping people from achieving anything is self-doubt. My friends, action brings clarity and it's the antidote to fear. Each week, my guest will bring bold, executable, intrinsic and targeted steps that you can use to put yourself first and Be It Till You See It. It's a practice, not a perfect. Let's get started.  Lesley Logan 1:06  Welcome back to the Be It Till You See It interview recap where my co-host in life Brad and I are going to dig in to the pragmatic convo I had with Nick Hutchison in our last episode. If you haven't yet listened to this episode, you should. You should just listen to it. So listen in any order you want. Doesn't really matter to us. But go listen to Nick. He is incredible. He's amazing. He's also just like, really like, sweet, nice dude. And he, it's announced we can say, he is expecting his first kid.Brad Crowell 1:32  I didn't know that. That's exciting. Congratulations, Nick.Lesley Logan 1:35  Oh. Get on social. I know. Brad Crowell 1:37  Yeah, I'm all over that. (Inaudible)Lesley Logan 1:39  Well, he can do Dad's Club. He could do Vincent's Dad's Club. Yeah. Brad Crowell 1:39  Yeah. I'll connect the dots there, Nick. That's exciting. Lesley Logan 1:46  I love it. He didn't even ask for dad advice and I'm like you should do this thingBrad Crowell 1:50  Congratulations. You're going to get it. Lesley Logan 1:50  So today is May 30th. It is World MS Day. About this day, World Multiple Sclerosis Day, falling on May 30th, invites dialogue on the disease. Multiple sclerosis, MS, is a relapse-remitting disease with a very slow progression. MS is also known as encephalomyelitis disseminata and its symptoms include muscle weakness, double vision and mental physical problems due to lack of research studies on the disease. The exact causes behind it are generally unknown. Many scientists believe that there might be connected to the onset of the disease and genes or nerve-cell dysfunction. Furthermore, there's no permanent cure yet. The symptoms can be relieved using the right set of treatments and medication. I just want to like shout out because there's actually been a lot of talk about this. Selma Blair, I believe, did a docu-series or documentary about this. She's been very vocal about it. Christina Applegate is now in a cane. And she, I believe, has to stop acting because of it and like she had a really amazing show, even up until very recently.Brad Crowell 3:00  We just met someone in Phoenix PLT who has MS.Lesley Logan 3:05  Yeah. Jack Osbourne has it. Montel Williams and Jamie-Lynn Sigler. There's actually more. There's, I'm gonna see if there's anyone you might know. But there's Tamia Hill, David lLnder, Walter Williams, Jonathan Katz, Janice Dean, Richard Pryor, Neil Cavuto, Trevor Bayne. So there's a ton more. I'm sure there's more. The only reason I brought these people up is like, you might have like, loved them for a long time and wonder what they're doing. And the truth is, is that this is a really hard and really sad thing that we have no information on, there's not a lot of treatments or studies being done on it, and it's a real shame. So anyways, but shout out to Selma Blair for the work that she's been doing to draw attention to it. So what do we got coming up? Okay. OPC Summer Camp is like this weekend. It is this weekend, not like, it is this weekend. Brad Crowell 3:56  It is May 30th. That means we're looking at two days from now is June 1st.Lesley Logan 4:03  Yes. So Brad and I will have our blue blockers along (inaudible). We are going to have to go to bed early tomorrow night, Brad, because you have to get up super early on Saturday. We are it's all hands on deck because it is just like Zoom. Like it's seven Zooms a day, seven different links, seven different teachers each day. Different groups of people, some people have day pass, some people have bought ala carte, so we have to be on top of everything. As a camp directors that we are, and we have 13 other camp counselors and just an incredible lineup of events for you. This is the biggest thing we've ever done online and we really hope you join us because it's, it's really it's all about the Pilates practitioner. You do not have to be a teacher to join these. And if you can't join us live you get to have the replays. So buy them anyways.Brad Crowell 4:48  That's right. I think that's the key. If you can't join us live, you get to keep the replays. Lesley Logan 4:53  Yeah, so opc.me/events is how you get your tickets before we go live. Okay, after that we're actually going to head out on tour. OPC Summer Tour. We're headed to the Midwest, y'all. We're hitting cities. We just pretty much skip over all the time. And so, Chicago. I'm looking at Yale. Brad Crowell 5:13  Milwaukee. One of the Twin Cities.Lesley Logan 5:14  Milwaukee. Yes. One of the Twin Cities. Brad Crowell 5:15  We're actually looking atLesley Logan 5:18  Indy.Brad Crowell 5:19  Yeah, sure.Lesley Logan 5:19  We have something in Denver. I mean, we go to Denver all the time, but we're going to, we're going to Denver. Colorado Springs. We are looking at Indy. I think we talked to someone. Brad Crowell 5:31  We're potentially gonna be in Cincinnati. We're looking at that. Lesley Logan 5:34  Yeah. So at any rate, lots of places. I think there's like 12 cities over the two weeks.Brad Crowell 5:40  We're gonna kick it off in Vegas. So we just added a 13th. Lesley Logan 5:42  Oh, hello, Vegas. Hi, for the love, thanks for being our kickoff location and sending us off on the way. So anyways, it's gonna be a lot of fun. Our headlining sponsor is Balanced Body, that means goodies, and you know, you're gonna get certificate towards buying that piece of equipment you've always wanted. And if you use my link, you get the discount. So boom, extra credit. Okay, then another thing that's happening as we speak now, but in June, hopefully open up the doors to eLevate for 2025. And I know that sounds a little early, but the reality is, is that the mentorship is a nine-month program. There's five weekends, I like to give people plenty of time to get their schedule ready, get ready for it, plan for it, and also be able to pay for it. So it is an investment and I don't take that lightly. So if you are wanting to learn more about eLevate if you want to, if you already know you want to do it, we only take 12 people in a round, you want to go to lesleylogan.co/ew. And by the way, my name is spelled L-E-S-L-E-Y L-O-G-A-N (lesleylogan.co/ew) That means eLevate waitlist.Brad Crowell 6:45  If you missed all that and we still have spots left, just reach out to us. If you want to join us.Lesley Logan 6:51  We don't know if we have spots left because we're recording in theBrad Crowell 6:51  We're recording ahead of time.Lesley Logan 6:55  Ahead of time. Brad Crowell 6:57  But yes, let's shift over to the audience question. So this is from schonliving on Instagram, I'm building my hours towards my Pilates mat certification and I find teaching group classes is much harder than one-on-one. Any tips to overcoming the fear, insecurity, anxiety and the form of impostor syndrome that I'm experiencing from being in front of a group class?Lesley Logan 7:24  Yeah, so schonliving, let me, okay, I love this question. First of all, a lot of people even say that they prefer a class to a private and that's because in the class they like it's kind of chaotic, and they, they don't have, there's a lot going on. So no one will notice that they might be nervous and on a one-on-one people can sense it. So I love that you are so confident on your one-on-ones it's actually quite hard to do. So I would say you're winning. The second thing I would just say is if you find you have imposter syndrome and you're new at anything, so this is for anyone, if you're new at something, you should feel like an imposter. You are new at it. If you didn't feel nervous. You are an egomaniac, narcissistic person who should probably go get like, like checked out. So anyway, here's what I will say is if you haven't listened to last week's episode goes into my my answer on cueing, you are new, you are not going to have it all figured out. You are going to have been a little nervous. What I would say first of all, the thing that I always do when I step into something that makes me nervous, I could just go, it's showtime and I be it till I see it. How would you act if you already were feeling confident teaching group classes? How would you act? How would you hold yourself? Like how would you welcome people into your class? How would you? How would you greet the class? How would you start the class? What is your speech for the class? How would you end the class, right? Don't worry about Brad Crowell 7:24  Yeah, you just be it till you see it.Lesley Logan 8:43  Yeah, don't worry about what you're gonna say in the middle of class. What are the in cast that you can control that you want to say to invite people into a space that you're in control of? Okay, so that's first and foremost. Second, my teacher Jay Grimes would say bad Pilates, get used to it. Dangerous Pilates, never. I always translate that to ugly Pilates, get used to it. Dangerous Pilates, never. When you're teaching a bunch of people who have different learning styles and different abilities of paying attention, it's gonna be a hot mess. So you need to look at a class and like be able to spot danger and correct that. Anything in between danger and perfect, just let it be. Okay? It will, they need to come back and they will get better. So that'd be my other thing. And the next thing is, is that people become teachers and in weekends now, like literally in a weekend or months, maybe showing that you, you've been doing this for a year, I don't know. But something tells me probably not. My teacher would say you're not really a teacher till I've been teaching for five years. And so just teach as many people as you can.Brad Crowell 9:54  Not in a judgment way. But the reality is there's so much to process and dots to connect and you know, just understanding plus you have to, you should be feeling it in your own body, too. You know, so it just takes time, y'all. It takes time.Lesley Logan 10:09  A lot of questions and worries and concerns you have they kind of answer themselves, the more you teach. So what I would say is get some friends together that love you. And to say I need to practice teaching a class and just teach them and they in return should give you testimonials. That's what they should do. That is, but that's going to help you but your goal, of course you're gonna feel nervous. You obviously care about doing well. So that says to me, nervous energy, and impostor syndrome just shows that you care and that you're brand new at something. You would never let a client go, oh, I can't do the 100 on day one. Because (inaudible).Brad Crowell 10:14  You would laugh at them and say, of course you can't. Lesley Logan 10:49  You're new. Brad Crowell 10:50  You just started.Lesley Logan 10:51  So my dear, of course you are nervous. You're new. And so for anyone who does teach Pilates, all this stuff applies to everything you want. You got to be it till you see it. How would you act if you already knew how to do the thing? And second of all, if you're beginner, kindness and graciousness and patience with yourself.Brad Crowell 11:09  Yeah, to yourself with yourself. Exactly. Yeah, great question. Okay. Now let's talk about Nick Hutchison. Nick Hutchison is the founder of BookThinkers, a company dedicated to helping authors promote and market their books. Initially indifferent to reading, Nick's outlook transformed in his early 20s after discovering the transformative power of personal development books. Today, as he's a lifelong learner, he has penned Rise of the Reader and podcast host of BookThinkers, Life Changing Books, his work across various platforms provides valuable strategies for implementing the lessons learned from books into everyday life.Lesley Logan 11:51  Yeah, he's cool. I really, I really enjoy him. I was on his podcast, BookThinkers, by the way. Brad Crowell 11:59  He's the nicest dude. Lesley Logan 11:59  Just really nice, very thoughtful. He's very perceptive. He listens. And he integrates it, he analyzes it, and he puts it out. It's just really wonderful. Get his book, you guys, if you are reading books, so that we're talking about on the podcast, and like, I'm not retaining enough, get his book. It's so, so, so good. It's been so helpful. Based off of his book, he taught a little mini version of it to us at the BBG event we went to, and I found that I took less tasks home, because I was like, the only thing I have to do is this thing, I'm only here for this thing, this is my intention for the next few days. And I really listened to a lot of things I was like, That's a great idea, not mine, that's a great idea, not mine, I left going, I just have these three things I'm going to do when I leave, and it's only been three, it's like two. And I'm really, really happy about it, because it's just great. So go get his book. Brad Crowell 12:47  Love that. Lesley Logan 12:48  One of the things I love he said that don't assume what your audience wants. And we mentioned the four agreements.And so the four Agreements, in case you've not read the book is don't take anything personally, don't make assumptions. The other two are be honorable with your word. If you say you're gonna do it, do it. And then there's a fourth one, always do your best. He said, don't assume what they want, ask them what they want. And then they should be brought along with you. Too often, a lot of people who are in this, maybe you're not wanting to write a book, but maybe you want to create a product or on-demand course or have an event. Most people protect it, hold it preciously to themselves. And then they're like, I get it. Here it is, here's the thing I made for you. But you didn't get any feedback along the way. So they weren't part of building it with you, which means they're not invested in the thing that you're excited about. And you didn't get the feedback along the way to know that they would want blue over green. Brad Crowell 13:35  Well, you guys both used personal experiences to relay, relay this obviously, the the first launch of Agency. You know, there was a lot of emotions tied up in that flop and also a shit ton of hours to spending time to like make this thing actually come together. And then Nick laughed and said, oh, I did that. He built an entire app. And he spent hundreds of hours and tens of thousands of dollars to build this app and nobody used it. And that's because we were making assumptions prior to rolling the thing out and then what you talked about with the flashcards was when you were rolling out the second reformer deck, you share the process along the way. And it got people that much more excited that much more excited. And it was it was considerably more of a powerful experience and launch for people than the first deck. Lesley Logan 14:31  Well, we were just at Pilates on tour in Phoenix. And this one girl is like, oh, I'm on the waitlist for the barrels and I'm like, oh, thank you so much. And I went to update her she's like, oh, I got the email. You're in the editing process right now. And she was so excited. So like take them on the journey because they actually get excited with you. They want to know what's going on. Like it was really cool and we hopefully by the time this comes out, it's on presale, because were obviously recording earlier, but it is part of it. And I can't recall if we've ever talked about this on here, but I'm just gonna bring it up in case you missed the episode. You know, we were at the Soho House couple days where we saw Nick in person last month. And this guy was just like how do you get people to wait for things. And it's really not about waiting for things. It's also about buying things. He was bringing up waiting, but to me how I think about how purchasing power you all listening have the purchasing power, every single one of you. You determine if something is successful or not. So you need to know that in everything that you buy, you actually give feedback based on your dollars. Okay, you've voting dollars, like you have a lot of different things you can think about with your money. And I, I shared that I bring people on the journey, I get them excited, I tell them the process behind the thing. And eight years ago, I might not have done that because I might have been like oh my God they're going to take my idea. They're going to be able to do it. Now they know how to do it. Here's the thing. And Nick and I talked about this. James Altucher says that less than 2% of people, yeah, less than 2% of people actually take action on any idea, let alone yours. And being part of the process makes them want to do it. So at any rate, I really love that he brought that up. I think it's useful not just for authors, but for anyone creating anything anywhere. What did you love that he said?Brad Crowell 16:14  I really loved when he was talking about the different reasons that people use excuses, justifications that people use why they don't read. He was talking about, I'm so busy or in a company, I've got a family, you know, blah, blah, blah, blah, blah. And he he always asks him, if I paid you $10,000 if you read this book in the next month would you do it? And of course, they would say yeah, yeah, yeah, yeah. I would totally do it. And he said, great, I've caught you in my trap. And the trap is, is obviously prioritization. We don't prioritize reading so we don't read, right? And his book is pretty cool in that it gives some practical advice on how to read 20 books a year by doing 15 minutes a day, which is 1% of your day. If you, if you do that, you're going to put yourself on track to read those 20 books a year. And he basically said, listen, it's not a question of whether or not we can read the books. It's a question of whether or not we value it enough. Right? It's about picking books that solve problems and build skill sets. And so you know, you know, whether you read as an escape, like, you know, to like to step away from the crazy hectic that you have, or you read to learn. When you're picking up a book for, especially for the learning, the rest of his book helps you actually apply and retain and apply the information that you're learning from that book.Lesley Logan 17:55  Yeah, I mean, I actually do like that you said that. We had another guy who said like, what if I told you if I pay you a million dollars to lose 50 pounds overnight could you do it? And he went like 50 pounds overnight? And he said, sure you could. You could have a leg off. Right? He's like, not ideal, but you could, right? And I Brad Crowell 18:12  He did say that and I was like I heard, he did say that. That's true. Lesley Logan 18:17  There's always a way. And I think it is, you know, like really asking yourself what you're prioritizing. And I think we talked about this in the episode which is like, you know, your entertainment time? Like, how much of it are you watching? Like Netflix? What if you just took a little bit of it, like a little portion of your entertainment time and read a book? That could solve the problem.Brad Crowell 18:35  Well, I laughed when he said, Yeah, it was working for this guy who suggested that I take my drive time, my 10 hours of drive time and start listening to podcasts. And I started taking notes on the pods, then decided to implement some of the strategies on the pods. And later, that same boss was like, wait, hold on. So now you're reading books, you're taking notes on the books, and then you're actually taking that advice and implementing it into your life. And he said, Nick, that's weird. He said nobody does that. That's amazing.Lesley Logan 18:37  He was using it in his job and it was making him way better at his job. And his own boss was like, what? How do you know this? How do you do this? So like it can, if you want to differentiate yourself, like it's not about being like 10 years ahead of some people sometimes just being a little bit ahead and that knowledge is that kind of power. So yeah.Brad Crowell 19:26  It's true. Brad Crowell 19:27  All right, welcome back. So finally, let's talk about those Be It Action Items. What bold, executable, intrinsic or targeted action items can we take away from your convo with Nick Hutchison? He said, set a SMART goal for each of the books that you read. We've talked about SMART goals before. SMART stands, it's an acronym, stands for specific, measurable, attainable, relevant and time-bound goals. Right? So specific, measurable, measurable meaning what's not measured can't really be managed. So set goals that are measurable, attainable. Set a realistic goal, trying to consume too much of an unrealistic goal makes you, it allows procrastination to creep in because it doesn't seem attainable. Then, relevant. You emotionally connect to the information. What does this book going to do for you? Ask yourself why am I actually reading this book and then time-bound. Give yourself an actual deadline to take actions on what you're learning in that book. Or for some of us, it might just be a timeout action to read the damn thing in the first place. Right? So he also includes writing down intentions on the inside cover of the book that you own and then reviewing it every time you read another chapter. So what are your intentions for this book, finished chapter two, go back and read your intentions. finished chapter three, read your intentions, finished chapter four. I think it's a really interesting way to stay focused on what you're trying to get out of the book. And you know, instead of just being like, I'm reading the book, I got through the book. Okay, next. I got through that book, too. I got through this book, too. No, you're actually anchoring, what you're learning against what your intentions for that book were. Pretty cool. Lesley Logan 21:08  Or I think, also, if you, like some books might have several things you can learn from them. But if you stick with one intention, you can always go back through. And like read it with a different intention. Yeah, yeah. But this way, you can actually not just take in information, you can integrate what you're learning, because you're not taking on too much information at one time.Brad Crowell 21:24  I love it. What about you? Lesley Logan 21:25  Okay, he said do a little personal edit, find a problem that you're dealing with and identify the problem and then go there and find a book that can help you solve it correctly. So he said, a lot of us won't do this. He's a warrant. If you don't fix it over the next 30 years, you'll experience that problem almost 11,000 more times. So. Brad Crowell 21:42  It's pretty insane. Lesley Logan 21:43  It's insane. But it's true. Because if you think of like, we have like 60,000, or whatever the amount of thoughts per day, and like 80% of them are like the same thought, because you haven't solved the problem. And you're just like rerunning that in your head. So I would just say, a lot of times people ask for advice on like, what books should I be reading? But yes, you could ask others for that. That could be very helpful. But if you first identify the problem, you might like the book that you pick up first better because it's about you. And we only care about solving our own problems. So there it is. Brad Crowell 22:15  Yeah, yeah. Lesley Logan 22:16  Anyways, Nick is awesome. Just you can actually follow him on Instagram and get really great book advice. You could you can also listen to his podcast BookThinkers to get really great ideas on like, what's a book that can solve a problem that you want to solve? So check him out and let us know what your favorite parts were. Share this with a friend if you've got a friend who's like saying they want to read more. That's a really good episode. Help them understand how they can do that and prioritize that reading goal. And until next time, you guys, I'm Lesley Logan.Brad Crowell 22:41  And I'm Brad Crowell.Lesley Logan 22:42  Thank you so much for listening. How are you going to use these tips in your life, share with us, share with a friend and until next time, Be It Till You See It. Brad Crowell 22:48  Bye for now.Lesley Logan 22:50  That's all I got for this episode of the Be It Till You See It Podcast. One thing that would help both myself and future listeners is for you to rate the show and leave a review and follow or subscribe for free wherever you listen to your podcast. Also, make sure to introduce yourself over at the Be It Pod on Instagram. I would love to know more about you. Share this episode with whoever you think needs to hear it. Help us and others Be It Till You See It. Have an awesome day.  Lesley Logan 23:17  Be It Till You See It is a production of The Bloom Podcast Network. If you want to leave us a message or a question that we might read on another episode, you can text us at +1-310-905-5534 or send a DM on Instagram @BeItPod. Brad Crowell 23:32  It's written, filmed, and recorded by your host, Lesley Logan, and me, Brad Crowell. Lesley Logan 23:37  It is transcribed, produced and edited by the epic team at Disenyo.co. Brad Crowell 23:42  Our theme music is by Ali at Apex Production Music and our branding by designer and artist, Gianfranco Cioffi. Lesley Logan 23:49  Special thanks to Melissa Solomon for creating our visuals. Brad Crowell 23:52  Also to Angelina Herico for adding all of our content to our website. And finally to Meridith Root for keeping us all on point and on time.Support this podcast at — https://redcircle.com/be-it-till-you-see-it/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

Today is World MS Day. The aim of the day, which takes place every year on the 30th of May, is to raise awareness of Multiple Sclerosis and bring together those who are living with the condition to share their stories. The theme for this year is diagnosis. Alan Morrissey was joined by John McDonald, Clare MS Ireland Community Worker and Shirley Keane O'Brien, who has MS, from Bunratty.

It's Multiple Sclerosis Awareness Month, and today is World MS Day. Today's show will have stories from folks living with multiple sclerosis and the latest info on research and treatments.

Saskatchewan has some of the highest MS rates in the world with close to 4,000 people living with the disease. About 12 Canadians are diagnosed with MS every day. Dr. Farrah Mateen from Mass General Brigham and associate professor at Harvard Medical School, joins Evan this World MS Day.

Joe is joined by Mary McCusker and Mary Devereux from MS Ireland to discuss Multiple Sclerosis and how to live with it for World MS Day. Hosted on Acast. See acast.com/privacy for more information.

Immunic Inc CEO Daniel Vitt joined Steve Darling from Proactive to discuss the ongoing challenges and recent developments in treating multiple sclerosis (MS). This interview took place in conjunction with World MS Day, a day dedicated to raising global awareness about this debilitating disease. Vitt emphasized the significant unmet medical need for effective treatments, noting that MS affects approximately 2.8 million people worldwide. The disease often leads to progressive physical disability, with many patients eventually requiring wheelchairs for mobility. Vitt explained that early diagnosis is crucial for MS, as it allows for more timely and effective intervention, which can significantly slow the progression of the disease. He highlighted Immunic's innovative approach to MS treatment, which targets both inflammation and neuroprotection. This strategy is designed to address the complex nature of MS, which involves both inflammatory and neurodegenerative processes. Immunic's lead drug candidate, vidofludimus calcium, is currently in clinical development for both relapsing and progressive forms of MS. Vidofludimus calcium works by activating a protein called Nurr1, which provides direct neuroprotective effects in addition to its anti-inflammatory benefits via DHODH inhibition. This dual mechanism of action makes it a promising candidate for comprehensive MS treatment. The drug is currently undergoing a phase 3 clinical trials for relapsing MS, with results expected in 2026. Additionally, a phase 2 clinical trial for progressive MS is underway, with results anticipated in April 2025. These trials aim to further validate the safety and efficacy of vidofludimus calcium in addressing the diverse and challenging aspects of MS. Vitt expressed optimism about the potential of vidofludimus calcium to transform MS treatment. He cited the drug's safety profile and its demonstrated efficacy in clinical trials as key factors contributing to this potential. If successful, vidofludimus calcium could become a critical tool in the fight against MS, offering hope to millions of patients worldwide. #proactiveinvestors #imminicinc #nasdaq #imux #DanielVitt, #MultipleSclerosis, #MSAwareness, #MSResearch, #ClinicalTrials, #VidofludimusCalcium, #Neuroprotection, #AntiInflammatory, #EarlyDiagnosis, #DiseaseProgression, #MSSymptoms, #HealthcareInnovation, #MedicalResearch, #DrugDevelopment, #Phase3Trials, #Phase2Trials, #MSDay, #Nrf2Protein, #PatientCare#invest #investing #investment #investor #stockmarket #stocks #stock #stockmarketnews

May 30th is World MS Day, and we're taking this opportunity to look at some of the challenges faced by people with MS around the world. Global economics and the peculiarities of different healthcare systems make fundamental issues like access to quality healthcare and affordable MS medications difficult for many and impossible for some. U.K. journalist and MS activist Rachel Horne joins me for a freewheeling conversation focused on the broad range of challenges that people with MS face every day.  We're also sharing details about the National MS Society's Black MS Experience Summit, which gets underway June 12th and 13th. Find out why you'll want to be part of this free virtual event. We have a lot to talk about! Are you ready for RealTalk MS??! The National MS Society's Black MS Experience Summit is happening June 12th and 13  :24 This Week: World MS Day is May 30th  2:07 Rachel Horne talks about some of the issues confronting people with MS around the world   8:10 Share this episode  26:51 Have you downloaded the free RealTalk MS app?  27:11 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/352 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Register for the Black MS Experience Summit https://www.nationalmssociety.org/resources/get-support/education-programs-and-library/black-ms-experience World MS Day https://worldmsday.org Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 352 Guests: Rachel Horne Privacy Policy  

Liam Flynn sits down with Chris Wright and Dr. Heidi Crayton ahead of World MS Day on May 30. Chris is the first person with MS to play in the NBA. Wright's professional career spanned almost a decade after his diagnosis. Dr. Crayton is a board certified neurologist who founded the Multiple Sclerosis Center of Greater Washington.

In this week's episode of The Just M.S. Show, host Justin Loizos discusses the latest developments in the world of Multiple Sclerosis (MS) research and awareness.Justin begins by discussing a groundbreaking discovery by researchers at the University of Virginia School of Medicine, who have identified a key gene, DDX39B, that could shape our risk for developing MS. This discovery could potentially open new doors in our efforts to prevent and better treat this disease. (Source: UVA Health Newsroom - newsroom.uvahealth.com/2023/06/07/ms-discovery-ids-factor-that-shapes-your-risk/)Next, Justin takes us to Nigeria, where Roche and the patient advocacy group Multiple Sclerosis Awareness in Nigeria (MSAIN) have launched an awareness campaign for World MS Day. They've developed a football that mirrors the signs and symptoms of MS, a creative and engaging way to raise awareness about MS and the importance of early diagnosis. (Source: Complete Sports - completesports.com/roche-neurologists-msain-raise-awareness-about-multiple-sclerosis-ms-in-nigeria-through-football/)Justin then discusses a study presented at the 2023 Consortium of Multiple Sclerosis Centers Annual Meeting that sheds light on the effects of de-escalating disease-modifying therapy (DMT) in patients with MS. The study suggests that de-escalation of DMT could be a safe possibility for some patients. (Source: Neurology Live - neurologylive.com/view/bridging-gap-de-escalation-ms-disease-modifying-therapies-carolyn-goldschmidt)He also covers the topic of stem cell therapies for MS. While they've been a topic of interest for nearly two decades, their clinical success has been limited. However, ongoing clinical studies are providing more insight into how these therapies compare to available treatments. (Source: Drug Discovery News - drugdiscoverynews.com/the-bumpy-road-to-treating-multiple-sclerosis-with-stem-cells-15687)Finally, Justin talks about potential new treatments on the horizon, including BTK inhibitors, CD40 Ligand inhibitors, and N-Acetyl Cysteine. He also discusses new biomarkers like neurofilament light and glial fibrillary acidic protein that could help doctors and researchers understand what's happening in our brains.Remember, we're all in this together, and every step forward in research is a step closer to a cure. Stay strong, stay positive, and keep fighting.The Just MS (Multiple Sclerosis) Show, w host Justin Loizos, is a podcast that connects, educates and tries to uplift others living with multiple sclerosis. It provides real-life stories, interviews, and information about DMTs (disease modification therapies) and updates on research developments.www.justmultiplesclerosis.com

In this episode, Justin Loizos unveils a unique part of his journey with MS - delivering a speech at Roche Canada, the world's largest biotech company, on World MS Day. He shares the inspiration, insights, and experiences that emerged from this special occasion, not forgetting the beautiful facility and the warm, professional team that made the day even more remarkable. Show Notes: • Justin's speech at Roche Canada and the significance of World MS Day. • Roche's impactful role in Justin's journey with MS, specifically with their revolutionary medication, Ocrevus. • The decision to use a walker on the day of the speech and the challenges, as well as the authenticity it added to his message. • A look into the beautiful Roche facility, the warm reception, and the pleasure of meeting his team in person for the first time. • Reflections on the impact of the experience on Justin's advocacy work and his connection to the MS community. • Closing remarks and a heartfelt thank you to listeners for their continued support. Remember to subscribe and share our podcast. Together, we can make a difference in the lives of those with MS.The Just MS (Multiple Sclerosis) Show, w host Justin Loizos, is a podcast that connects, educates and tries to uplift others living with multiple sclerosis. It provides real-life stories, interviews, and information about DMTs (disease modification therapies) and updates on research developments.www.justmultiplesclerosis.com

As part of World MS Day, Multiple Sclerosis Ireland Mid West branch is holding an information day in the Radisson Hotel tomorrow (Tuesday 30th May) from 10am to 2pm. Mary McCusker MS support worker in this region joins Joe to tell us more. Hosted on Acast. See acast.com/privacy for more information.

Today is World MS Day. This day of celebration brings the global MS community together to share stories, raise awareness and campaign for everyone affected by MS. There are over 9,000 people in Ireland living with multiple sclerosis. Deirdre Drowney is the regional community worker for South Tipperary & she spoke to Fran on Tipp Today along with Alison O'Regan from Clonmel, she was diagnosed when her daughter Abigail was born 21 years ago.

Welcome to the 300th episode of RealTalk MS! Yikes! In last week's episode of the podcast, Dr. Bruce Bebo walked us through the latest research on the prevalence of MS in the United States, and the data serves as a clear reminder that anyone can get MS.  However, not everyone with MS receives the same quality of care. My guest today is clinician-researcher Dr. Lilyana Amezcua, and we're discussing her work in exploring healthcare disparities among minority populations. In addition to celebrating our 300th episode, we're also celebrating World MS Day! We'll let you know where you can join the virtual festivities. And, as our RealTalk MS Listener Survey ends, we're announcing the winner of a $100 Amazon Gift Card. Can Do MS is hosting a day-long in-person and virtual More About MS program this Friday, June 2. We'll give you the details and tell you how you can register for this free event. And the International Progressive MS Alliance has announced a large-scale research program focused on developing solutions to some of the most challenging symptoms that people living with progressive MS face. We're sharing the details. We have a lot to talk about! Are you ready for RealTalk MS??! Welcome to our 300th episode!  :25 It's World MS Day!  1:55 Congratulations to the winner of a $100 Amazon gift card!  2:56 Details and registration info for the Can Do MS More About MS Program  3:43 The International Progressive MS Alliance announces a large-scale research program  5:17 Dr. Lilyana Amezcua discusses healthcare disparities among minority communities   7:51 Share this episode  32:12 Thanks for listening, and here's to the next 300!!  32:32 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/300 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com World MS Day on the Web https://worldmsday.org World MS Day on Facebook https://facebook.com/worldmsday REGISTER for the Can Do MS More About MS Program https://cando-ms.org/more-about-ms-registration Prioritizing Progressive MS Rehabilitation Research: A Call from the International Progressive MS Alliance https://journals.sagepub.com/doi/pdf/10.1177/1352458521999970 Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 300 Guests: Dr. Lilyana Amezcua Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

On Monday's Morning Focus, Alan was joined live in studio by Shirley O'Brien who is living with multiple sclerosis and is from Clare along with John McDonald who is a Community Worker with Multiple Sclerosis Ireland. They spoke ahead of World MS Day which is set to take place on Tuesday 30th of May. Shirley described her battle with multiple sclerosis and highlighted the way in which her MS diagnosis altered her life. John looked ahead to the upcoming World MS Day information fair that is taking place on Tuesday May 30th in the Radisson Blu in Limerick. He described the information stands that will be present on the night which will cover finance, Benefits & entitlements, personal transport & driving, employment & training, housing, migrants and advocacy. The aim of the day is to bring the MS community together to share stories and raise awareness regarding multiple sclerosis. For more information please contact Mary McClusker on midwest@ms-society.ie or by calling 061-303-802.

Idag är det internationella MS-dagen, World MS Day. Hur är det att leva med MS idag och hur ser framtiden ut? Finns det fortfarande fördomar om diagnosen? Frågorna är många och svaren ännu fler. Ett avsnitt för dig som vill veta allt och ännu mer.

Welcome to Living Well with MS, where we are pleased to welcome Molly Meng as our guest! Molly has been following the Overcoming MS Program since 2020 and is an artist with a passion for storytelling. She chats to Geoff about how she adapted to the Overcoming MS Program, how she has found ways to manage stress and how her MS diagnosis has led her to build connections with others living with MS. Watch this episode on our YouTube here. Keep reading for the key episode takeaways and Molly's bio. Make sure you sign up to our newsletter to hear our latest tips and news about living a full and happy life with MS. And if you're new to Overcoming MS, visit our introductory page to find out more about how we support people with MS. World MS Day Tuesday 30th May is World MS Day, this year we're joining charities all over the world to share stories of connection using #MSConnections. Join the global campaign to make a difference to people with MS here: overcomingms.org/worldmsday Key Takeaways:  Understanding how diet affects your health can help you make changes “I was such a dairy hound. I was not only raised on dairy, but if you asked me one thing that I love having in my life ever it was dairy cream. Didn't have to be ice cream, just cream, milk, butter. I loved dairy so much that I thought, 'how will I ever give it up?' But the moment I read [the research on] the Overcoming MS website, I walked into my kitchen, and I just emptied out my fridge.” Following the Overcoming MS diet can get you excited to try new flavours and food combinations “[Following the Overcoming MS Program] has changed my excitement for food. I thought I was a foodie before, but now I wake up in the morning [and] I think what kind of flavours do I want to put together? Do I want salty and sweet? What can I use to get to that flavour? Can I use dates? Can I actually use a little tahini and dill? I just love it. I now cook and make things as a relaxing hobby.” Mindful walking can be a form of stress-reduction “When I'm on my dog walk, I don't take a phone. I don't have conversations. On the dog walk, I just find that I'm really mindful and I'm noticing the robins and the flowers. My whole body tends to lower its adrenaline and by the time I get home from that walk, I don't find a lot of things to be stressed about.” Related Links: Molly's Website: https://www.mollycmeng.com/#/ Molly's Instagram: https://www.instagram.com/molly_c_meng/ New to the program? Check out our quick guide to getting started: https://overcomingms.org/new-to-oms Overcoming MS Recipes: https://overcomingms.org/resources/recipes New to Overcoming MS? visit our introductory page Find out more about Overcoming MS here: https://overcomingms.org/ Follow us: Facebook Instagram Twitter YouTube Pinterest Don't miss out: Subscribe to this podcast and never miss an episode. Listen to our archive of Living Well with MS here. If you like Living Well with MS, please leave a 5-star review. Feel free to share your comments and suggestions for future guests and episode topics by emailing podcast@overcomingms.org. Make sure you sign up to our newsletter to hear our latest tips and news about living a full and happy life with MS. If you enjoy this podcast and want to support the ongoing work of Overcoming MS, you can make a donation here. Bio: Molly's personal life and MS diagnosis Molly Meng is a Los Angeles, California native who recently moved with her husband to Portsmouth, New Hampshire. She was diagnosed with MS in August 2020 and started following the Overcoming MS program that same month. The move from CA to NH was largely influenced by this diagnosis, in an effort to slow down and live deeper in nature. Molly's career as an artist Molly is an artist, working with ephemera, vintage photos and textiles, who also teaches creative workshops throughout the year. She loves being on stage performing stand-up comedy, and storytelling. Molly finds enjoyment and ease in seeking out new people and speaking with strangers.  Her motto that “strangers are just friends you haven't met yet” has led her to meet a wide variety of others who are living well with MS.

The original post can be seen here My details are: Website: www.a30minutelife.com Facebook: www.facebook.com/a30minutelife Twitter: www.twitter.com/a30minutelife This was first broadcast on Connemara FM. Fresh Coffee Store Buy coffee freshl...

May 31 2022 - TCHT_ Rundown Tuesday_ World MS Day

Today is World MS Day, which takes place on the 30th of May every year. On Monday's Morning Focus, Alan Morrissey was joined in studio by Michael Conneely, originally from Ennistymon now residing in Ennis about his journey over the years living with MS and how he keeps the sunny side up! Alan was also joined in studio by John McDonald, Community Worker for Counties Clare and Galway. If you are interested in being a volunteer with MS Ireland, contact John at 087-2502009 or email johnm@ms-society.ie

We met with Bernie and Michael who are both sufferers with MS on this World MS Day

Idag är det Internationella MS-dagen, World MS Day. Hur är det att leva med MS idag och hur ser framtiden ut? Finns det fortfarande fördomar om diagnosen? Frågorna är många och svaren ännu fler. Ett avsnitt för dig som vill veta allt och lite till.

Think about how much faster, easier, cheaper, and less invasive it would be if MS could be diagnosed by a simple blood test.  Scientists have identified biomarkers that can be used to diagnose MS and even predict MS before someone experiences any symptoms. Biomarkers may even be used to predict MS progression before it occurs.  Joining me to discuss how biomarkers may change the way MS is diagnosed and treated is Dr. Tanuja Chitnis, a Professor of Neurology at Harvard Medical School, as well as the Director of the CLIMB Study and the Translational Neuroimmunology Research Center at Brigham and Women's Hospital.  We're also talking about a recent breakthrough in myelin repair. We're sharing all the details about how you can participate in World MS Day on May 30th. We'll tell you about a report commissioned by the National Academy of Medicine that takes a close look at the challenges of identifying credible health information in social media.  And if you're an MS caregiver, healthcare professional, or researcher, we'll give you the details of an important survey that you can participate in. We have a lot to talk about! Are you ready for RealTalk MS??! Biomarkers can change everything   :22 May 30th is World MS Day  1:53 Lab-made molecule is shown to promote myelin repair in preclinical models of MS  3:23 National Academy of Medicine weighs in on the challenges of finding credible sources of health information in social media    5:03 An important survey for MS caregivers, healthcare professionals, and researchers  11:34 Dr. Tanuja Chitnis discusses biomarkers that may fundamentally change how MS is diagnosed and treated  13:38 Share this episode  28:23 Download the RealTalk MS app for your iOS or Android device   28:43 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email:  https://realtalkms.com/247 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance Report: Identifying Credible Sources of Health Information in Social Media: Principles and Attributes https://nam.edu/identifying-credible-sources-of-health-information-in-social-media-principles-and-attributes World MS Day https://worldmsday.org iConquer MS Survey for MS Caregivers https://survey.alchemer.com/s3/6823942/Caregiver-Survey-MS-Caregivers iConquer MS Survey for Researchers and Healthcare Providers https://survey.alchemer.com/s3/6823815/Caregiver-research-survey-HCPs-and-researchers Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 247 Guests: Dr. Tanuja Chitnis Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

Welcome to Living Well with MS Coffee Break #31, where we are pleased to welcome Nigel Bartram as our guest!   Our Coffee Break series is your chance to get to know members of our diverse OMS community. In each episode, you'll join Geoff Allix for an intimate chat with a different member of our global community. Our guests will share their personal stories and talk about their challenges and victories, large and small. We hope you find common cause and a source of inspiration from the stories of these very special people. As always, your comments and suggestions are always welcome by emailing podcast@overcomingms.org.   Nigel is a special member of our community – a retired marketing professional who has fused his writing talents and penchant for humor to share his experiences with MS from a very unusual and humorous perspective. We'll dive more into that shortly, plus we have a very special surprise for you, so stay tuned. We hope you enjoy this episode's conversation with Nigel, coming to you straight from Paris, France.   Nigel's Bio (in his own words):   I was born in London but moved around the UK as a child. After a 1st degree in History and then an MBA, my career landed mostly in marketing in the financial sector. In my last job in the UK, as Sales & Marketing Director of a retail stockbroker, following spectacular growth from start-up, I helped lead the company through a heavily oversubscribed IPO onto the London Stock Exchange.    Aged 43 I upped sticks to follow Caroline, my wife, in what was planned to be a temporary career move for her to France, along with our two young children, and my rubbish French. I became a house husband, looking after the kids, improving my ‘null' French, and helping build a house in our Paris suburb (with stunning views towards the city. Temporary morphed into permanent. A joyful adventure, imbibing the beauty of our surrounds and French gastronomy became altogether more serious. Settling in France permanently meant I had to find a job. I retrained as a teacher of English, set up a language school, and taught part-time as a university Associate Professor.      All that was a breeze compared to a body which inexplicably started to go haywire. Overnight, out of nowhere, I lost 90% of the hearing in one ear (which happily came back of its own accord, more or less). In my long-gone student holidays, I worked as a tree surgeon, so heights held no fear for me. So how come I found myself sick with panic driving very slowly along the magnificent Gorge du Verdun with Caroline and the kids on board in 2003? I was petrified by the sheer drop into the ravine, something I'd have relished the challenge of scaling up in yesteryear. I suffered in silence of course.   I wasn't diagnosed with MS for another six years, time enough for my ‘flappy foot' and drunken sailor swagger to become my trademark walk. Bit by bit, bucket loads of other symptoms intruded into my daily life. Time enough also for MS to land me in plenty of challenging situations, some of which, even though they may have been difficult at the time, were clearly comic book stuff.   The idea of the book crystalised a few years later when I was on an OMS retreat. To my great surprise and delight, I realised that MS hadn't robbed any of us MS suffers of our senses of humour. Indeed, it had given us a rich new vein of experiences to mine and chortle over, so important when up to half of people with MS experience depression at some point.   The deal was sealed when the retreat facilitators, Dr Keryn Taylor and Dr Craig Hassed, a world-renowned expert on mindfulness, warmly embraced the idea of such a book for the morale boost it would bring to people with MS, and those close to them, by presenting an altogether lighter side of the condition. Off I went to write down a few of my own stories and harvest those of other people with MS. What a job the latter proved to be!   Questions:   Nigel, welcome to Living Well with MS Coffee Break. We're so pleased to have you on our program. The purpose of this series is to better get to know some of the diverse members of our community from around the world, and today you're in the hot seat. Can you tell us a little about your day-to-day life? When were you diagnosed with MS? Can you provide some context on that? When were you diagnosed and how did you initially deal with it? At which point did you come across the OMS program? How was that experience for you? Why did you decide to start following it? You mention in one of the 3 key things to know about you, which can be found in the show notes, that OMS may have saved your life. That's powerful. Can you speak a bit about that? Let's shift gears a little bit and talk about a very exciting project you've just completed and are about to launch. You've written a book called ‘MS A Funny Thing', which is an illustrated collection of humorous essays you've written through the years about your experience with MS. Can you tell us a bit about it? How has humor helped you deal with the challenges of MS? Another special thing about this book is that you've dedicated all the proceeds to several nominated MS charities. What compelled you to model the project this way? This book is illustrated, and I understand there is an interesting backstory to how you came to collaborate with the illustrator. Can you share a little about that? Since we have whet everyone's appetite about this book, we have a very special treat for you. Nigel is going to read one of his essays from the book! This is very exciting, Nigel. It's the first author reading on this podcast. Please take it away and perhaps share its title and a little context on the piece you're going to read for the next few minutes. Wow, that was fantastic. Thanks so much, Nigel. How can people get their hands on your book? Before we ask Nigel one final question, I want to remind our listeners that May is Mindfulness and Meditation month at OMS. To mark that, tune into a special webinar on May 17, featuring a live meditation session with Phil Startin. If you're listening to this episode after May 17, don't worry, you can view a replay of this or any of our webinars at any time. Details on registering for this free webinar, as well as a link to replays of past webinars, can be found in our show notes. And check out the OMS social channels for daily mindfulness tips that you can incorporate into your day. Nigel, thank you so much for being on Living Well with MS Coffee Break and allowing our community to get to know one of its own a little better. One last question before you go, and it's a bit of a tradition in that we ask it of all our Coffee Break guests. If you tap into your experience with MS generally and OMS specifically for a nugget of wisdom that would help people ease into and better adopt the OMS program, what would that advice be?   Praise for Nigel's Book:   “There are three things I'd like to say about Nigel's book. First, in medicine, we now understand that laughter is good medicine. This book is decidedly good for you! Second, all proceeds go to worthy MS charities. Win-win! Third… now what was that third thing? I need to take Nigel's sage advice and stop nominating how many points I am about to make, don't I?”   Professor George Jelinek MD, Honorary Professor, Melbourne School of Population and Global Health and Founder of Overcoming Multiple Sclerosis   Three Interesting Facts About Nigel (in his own words):   I'm physically pretty handicapped, with an EDSS of 7, but still live a fulfilled life. I haven't given up hope of getting some lost physical function back and am working hard to do that and making some early progress. I'm certain but can't prove that the OMS regime saved my life, getting me through a flirtation with the grim reaper three years ago. Until fairly recently, we who've continued deteriorate physically despite following the programme religiously, have been a real OMS Cinderella, as though somehow, we're an aberration and should be ignored. This view is shared by quite a lot of my OMS friends who have similarly failed to experience any recovery. We nonetheless continue to adhere to the programme believing it to be a force for good even if it doesn't do what it says on the tin for us.   Nigel's Links:   Nigel's book MS A Funny Thing is officially released on May 30 (World MS Day), but you can purchase early here Check out the blogs Nigel has written on the Overcoming MS website Check out Nigel's website, where you can get a taste of his writings Register here for the OMS meditation webinar with live meditation session, taking place on May 17; if you've missed the live webinar, catch the replay here   Coming up on our next episode:   On the next episode of Living Well with MS, premiering May 25, 2022, meet Arlene Faulk, Tai Chi instructor, storyteller, and author of the new book, Walking on Pins and Needles: A Memoir of Chronic Resilience in the Face of Multiple Sclerosis. Learn how Arlene deploys the ancient practice of Tai Chi to help manage chronic pain associated with MS.   Don't miss out:   Subscribe to this podcast and never miss an episode. You can catch any episode of Living Well with MS here or on your favorite podcast listening app. For your convenience, a full episode transcript is also available on all platforms within 72 hours of each episode's premiere. If you like our program, don't be shy and leave a review on Apple Podcasts or wherever you tune into the show. And feel free to share your comments and suggestions for future guests and episode topics by emailing podcast@overcomingms.org.   S4E51c Transcript Coffee Break #31 with Nigel Bartram   Geoff Allix (00:01): Welcome to Living Well with MS Coffee Break, a part of the Living Well with MS podcast family from Overcoming MS, the world's leading multiple sclerosis healthy lifestyle charity, celebrating its 10th year of serving the MS community. I'm your host, Geoff Allix. Today, you'll meet someone living with MS from our diverse and global Overcoming MS community. Our Coffee Break series invites you into the lives of each guest. They share their personal MS journeys and speak openly about their challenges and victories, large and small. We hope you find some common cause and a source of inspiration from the stories of these very special people. You can check out our show notes for more information and useful links. You can find these on our website at www.overcomingms.org/podcast.   If you enjoy the show, please spread the word about us on your social media channels or leave a review wherever you tune in to our podcast. Finally, don't forget to subscribe to Living Well with MS on your favorite podcast platform so you never miss an episode. So get your favorite beverage ready, and let's meet today's guest on Living Well with MS Coffee Break.   Welcome to Living Well with MS Coffee Break #31, where we're pleased to welcome Nigel Bartram as our guest. Our Coffee Break series is your chance to get to know members of our diverse OMS community. In each episode, you'll join me for an intimate chat with a different member of our global community. Our guests will share their personal stories and talk about their challenges and victories, large and small. We hope you find common cause and a source of inspiration from the stories of these very special people. As always, your comments and suggestions are welcome by emailing podcast@overcomingms.org. That's podcast@overcomingms.org.   Nigel is a special member of our community, a retired marketing professional who has fused his writing talents and penchant for humor to share his experiences with MS from a very unusual and humorous perspective. We'll dive more into that shortly; plus, we have a very special surprise for you, so stay tuned. We hope you enjoy this episode's conversation with Nigel, coming to you straight from Paris, France.   So Nigel, welcome to Living Well with MS Coffee Break. We're very pleased to have you on the program, and the purpose of this series is to get to know a bit better the diverse members of our community from around the world, and today you're joining us from Paris, France. So could you tell us a little bit about your day-to-day life?   Nigel Bartram (02:27): Yeah, thanks very much for having me. It's a great pleasure. First of all, a little correction. It's not your fault, but we actually don't live in the center of Paris, or actually in Paris itself, but in a very leafy suburb, with a forest on one side and the river Seine, you can see the barges going past from our bed in the morning, we're about 20 kilometers outside the center of Paris.   Geoff Allix (02:51): That actually makes it sound more idyllic than living in Paris now.   Nigel Bartram (02:55): Well, it is. And I think in common with what's happened in the UK and many countries post-COVID, people are beating a path out of big towns and cities to go to places where there are spaces which during confinement, as they called it here, are a bit more pleasurable than being cooped up in a rabbit hutch, which is many people's place in Paris.   But yeah, so my everyday life, it's I think largely unexciting. I'm fairly handicapped, so I don't get around very much, but I spend quite a lot of time writing on my computer and doing blogs for OMS and for other MS charities, and it's one of the reasons I had time to create the book. One of the great delights of living here is the gastronomy, which is a reason why we stayed and not went back. So lots of delicious meals, all conforming to the OMS guidelines, or as we called it on my retreat, legal food. And incidentally it's easier, I think, in the UK to eat out than it is here. People, with the exception where they get to know you very well, look incomprehensibly at you when you say, "Well, I can't have this, I can't have that, can't have that," and the rest of it. So they give you a plate of mushy green beans or something quite often. I exaggerate, but anyway.   Geoff Allix (04:34): No, I've been to France a number of times since following OMS diet, and I would say it's one of the more challenging places I've been to. We did eat a fair amount of pizza, because anywhere that does freshly made pizza, it's fine. Have pizza without cheese. But yes-   Nigel Bartram (04:56): I think that one of the saving graces actually is fish, because the French eat far, far more fish and seafood than in places in the UK. So even in a brasserie, you'll find fish on the menu, and they'll deign to not fry it or whatever, then you're okay.   Geoff Allix (05:19): And so when were you diagnosed with MS, and could you tell us a bit about that diagnosis and how that went?   Nigel Bartram (05:23): Yeah, I was diagnosed in 2009, but the first symptoms started appearing in 2003. And the reason for the delay was, I guess, twofold in the diagnosis. Firstly, that my GP, while I wouldn't expect him to have been able to diagnose MS, really ignored things that were happening to me, and just sent me for more and more physio, which of course did nothing at all. At the time, one of the big symptoms was what I call the floppy foot, drop foot. And so that was one cause of the delay. The other was that courtesy of SNCF, the French train company, I had a big accident so I was laid up for over a year and ended up suing the rail company. So that totally disrupted life, including getting on the trail of whatever it was that was causing the problem.   So I was diagnosed in 2009, as I said. Immediately after diagnosis, I had to go back to the UK for a week and left my wife, and the neurologist sent the results through. And in French, MS or multiple sclerosis is called sclérose en plaques, SEP they call it, for MS. And my wife is really, really bilingual, but you can only ever be totally bilingual, or you can only be bilingual to the extent you've lived in the two languages through the same life experiences. So of course, she's never had any cause to know what SEP or MS in French was, so she immediately Googled and was appalled to find out what it was that was wrong with me.   And I think it's a fairly common phenomenon that it's often tougher for the partner, for the wife or for whoever it is that's the bystander in this, than it is for the person themselves. Because I mean, we're helpless to some degree, although if you haven't got primary progressive MS then there are meds now available. They just haven't the faintest clue. And for me, it was actually a welcome relief, because I'd had this bag full of things happening over the preceding six years and I now had an explanation for it. That wasn't good news, obviously, but at least I had some rationale to explain what had been happening to me.   Geoff Allix (08:12): That's true. And for me personally it was like, I haven't got a tumor in my brain, or something. You start thinking, "What else could it be? It's something going on neurologically." And so it could have been worse, there is that.   Nigel Bartram (08:28): Yeah. Well, I think your imagination is better than mine. I didn't even think... What on Earth is causing the incontinence, whatever's causing my foot to drop and me trip up everywhere.   Geoff Allix (08:43): And when did you come across OMS, and how did that go?   Nigel Bartram (08:49): Yes, I came across OMS courtesy of... I don't know if you know the magazine New Pathways.   Geoff Allix (08:54): Mm-hmm.   Nigel Bartram (08:57): I can't remember how this happened, but anyway, I was in contact with the editor of New Pathways, and he told me about an event which was taking place in Brighton, where [inaudible 00:09:11] and Craig Hassed was there as well and was giving a conference in the Amex center there. So I went along, that was in 2014, and I absolutely bought what I was hearing.   And I was nowhere near on the OMS program, but I found over the course of the preceding years that I probably did the shopping most of all, more than my wife. And I found I'd gone off red meat almost totally. And so the family are complaining, "Why are you giving us all this chicken?" None of them liked fish, so I didn't stick my neck out that far, but the things my body was telling me that it no longer wanted. So actually the food side of it really didn't give me a big, big problem, because I was mentally and physiologically unconsciously heading that way in any case. So that's how I came across OMS, and then the following year I was lucky enough to go on a retreat, a weeklong retreat in Ammerdown. So that's my OMS story.   Geoff Allix (10:25): And you mentioned in one of the three things to know about you in the show notes that OMS may have saved your life. So that's quite a powerful statement, so could you tell us about that?   Nigel Bartram (10:43): Well, a powerful statement made by a non-medic, non-scientist. You have to take it with the caveat. Yeah, it was coming up on three years ago, I was admitted into A&E; well, twice actually, so they bundled me out the door at two o'clock in the morning the first time. And it turned out to be pancreatitis, which is probably caused by a gallstone escaping the gallbladder. I got septicemia, and I got a couple of other things. So I was six weeks in intensive care. And it's my honest belief, but I say it's an untestable thing to say, but that my body wouldn't have been strong to withstand all that.   The surgeon who subsequently took out my gallbladder to avoid any repetition with gall stones, he said... Because I was questioning whether, because it was the first time anything like this ever happened, whether it was necessary. And he said, "Well, about 50% of people who get pancreatitis like you die. So you're lucky to have escaped that. And then you had septicemia on top of it." And so that's my belief that it was some inner strength that really got me through it. It was very challenging to keep to the diet, to keep to the food regime in hospital, with hospital food. [inaudible 00:12:30].   Geoff Allix (12:30): Yes. I've had some infusions, and I found that staying in hospitals can be somewhat problematic, but yeah. Thankfully not for as long as you, so I could manage it for a few days, things being brought-   Nigel Bartram (12:45): They allowed my wife to come in with meals stuck in the fridge for a couple of days' worth. So a mixture of starvation and brought in meals got me through it.   Geoff Allix (12:59): So you've touched on your book, so if we could change a little bit and talk about this, so it's a hugely exciting project you just completed, about to launch. And the book is called MS A Funny Thing, which is an illustrated collection of humorous essays that you've written through the years about your experience with MS. So could you tell us a bit about the book?   Nigel Bartram (13:20): Yeah. Sorry, just to slightly correct what you said. Well, first of all, the full title is MS A Funny Thing (well sometimes!), not always. And secondly, that I mean, I've got two or three stories in there, but I didn't want a book about my experiences. I want a book about lots of people with MS experience, and therefore it's a collection of the stories and a couple of poems by people that I've garnered over the years. So yeah, it's an illustrated book, each story or poem is illustrated by a funny drawing or painting done by professional artists.   The genesis actually came about on the OMS retreat because I was really surprised, agreeably so, by the real positivity that I found amongst my fellow retreatees. I don't know what I was really expecting, but plenty of laughter, lots of bonhomie, and so on and so forth. And so I thought, well, this is good. People with a sentence of MS don't necessarily throw away their humorous side at all. And the two facilitators, one's Dr. Craig Hassed, the mindfulness guru, and Dr. Keren Taylor, who's a consultant psychiatrist and works under the OMS umbrella. I bounced the idea off them of a book exactly as it's turned out and asked them what they thought. And they thought it was a very, very good idea. So I floated it to the group, who all liked it as well. So I was then able to tap a few members in the group for stories. And that was really the start of it.   Geoff Allix (15:29): And has humor helped you deal with some of the challenges of MS?   Nigel Bartram (15:35): I guess so. I never really thought about it in those terms, because looking for the funny side of things, and not in a desperate search, but through difficulty, often in retrospect, you do find something to laugh about, something that wouldn't have happened to somebody else if they'd been able bodied or not been in that particular situation because of the MS symptoms causing that. And through the book, being able to talk to other people about their experiences and helping them write up in some cases their experiences, and they're genuinely funny.   Geoff Allix (16:26): And another special thing about the book is that you've dedicated all the proceeds to several nominated MS charities. So what compelled you to make that decision? Why did you decide to model the project this way?   Nigel Bartram (16:42): Because I don't need the money. We don't need the money, particularly. I thought that... Choosing the charities, that they have given me a lot. So it's a way of paying that back, hopefully with dividends. So it was pretty much a no brainer to do it for those two reasons.   Geoff Allix (17:10): And I've heard that there's an interesting backstory with how you came to work with the illustrator for the book, so could you tell us a little bit about that?   Nigel Bartram (17:22): Yes. The idea for having illustrations came from a friend in London, and at the time one of her brothers was doing an art course, and I said, "Yeah, it's a great idea, but where do I find somebody to do the illustrations?" And as I said, her brother was doing an art course at the time, so she said, "Well, I'll get my brother to post something on the notice board," which he did, and there were a couple of responses, one of which turned out to be the person that did probably about the first 12, 15 illustrations, was an Italian student studying in London at the time.   And who she termed her favorite auntie; it wasn't actually an aunt, a blood relation, but her favorite family friend; had MS and quite severely disabled. And so it obviously chimed with her as a cause. But I think what also within that struck a chord was that despite I did have a Zoom with her so-called auntie one occasion, who was in a wheelchair, unable to use a mouse so using eye movement to control the cursor, but was nonetheless chirpy. And I think that that probably resonated a lot with the illustrator. And so for a pittance, she did the illustrations, and exercised a lot of patience in dealing with somebody who is completely unartistic, and on a good day can do a half sensible brief and on a bad day nobody can understand what I'm thinking about.   Geoff Allix (19:12): And since we've whet everyone's appetite about the book, we have a special treat for our listeners, and Nigel's going to read one of his essays from the book. So it's the first author reading we've had on the podcast, so please take it away. And could you share the title and a little context on the piece that you're going to read for the next few minutes?   Nigel Bartram (19:34): Yeah. Well, this isn't one of my stories, because I wouldn't lay claim to having the best stories in the book at all. This is one I selected it because it's quite punchy and not too long. So I thought I didn't want to send your listeners off to sleep, but if I did, with a smile on their face perhaps. But anyway, so the title of this, it's by somebody called Ian Daly, and the title is MS, Walking Sticks, Waterboarding, and Much More.   Multiple sclerosis is an insidious disease. The changes that it brings about can seriously affect your life, without you immediately realizing. For me, the first and possibly hardest change to come to terms with was needing assistance to be able to get around. For context, I was a reasonably fit 50-year-old man who would walk approximately five miles a day. I loved to walk. I've always tried to preserve some sense of humor when dealing with MS and its sackful of issues. I probably laugh at things that I shouldn't, say things that cause friends to look at me, and I suspect silently tut. Consultants and nurses roll their eyes, but I usually get a laugh, and that's what matters. It's my chronic illness, and I'll take whatever pleasure I can from it.   Anyhow, jump ahead a couple of years, and I'd started to find walking difficult and falls were becoming more frequent. My legs had stiffened up; controlling them was becoming ever more wearisome. The usual test, two consultants plus an MRI, and I'm awarded a title of MAM with PPMS, middle aged man with primary progressive MS. Hooray! I remain disappointed that there isn't a badge, some form of certificate, and media recognition. With legs that were always tired, I elected to use a stick to help keep mobile and hopefully more stable. Rather than burden the NHS in innumerable physiotherapist and occupational therapists, who I suspected have better things to do, I ordered an adjustable stick through the internet. It arrived and it was reasonably successful in enabling me to walk short distances.   Accepting I was now MAM with PPMS who needed a stick was slightly harder to come to terms with. I needed to shake off this pride thing. It seems this is a common experience and is the subject of many "do whatever you need to do to get by and stay strong" articles over the internet. Due to a rapidly wasting left leg, I soon became MAM with PPMS who needs two sticks. Isn't life grand? Walking short distances was now possible, although my mean-minded MS probably reasoned that I was getting around too well with my two sticks; with cushioned hand grips, no less; elected to introduce severe vertigo for good measure. So I now find I'm walking with two sticks across the deck of a ship during high seas wearing roller skates. Superb.   Incidentally, I was once visiting a doctor with my two sticks and severe vertigo for a series of blood tests. I was discussing weight gain with the nurse, and the fact it's hard to exercise when you have two sticks, weak legs, and vertigo, as you do when someone is sucking bucket loads of blood out of your arm. "Have you tried a treadmill?" says the nurse. Fortunately, she finished extracting blood and was concentrating on filling buckets and applying the useless cotton wool bandage to each of my shoulders, so didn't see my wide-eyed stare, and although I do say myself, magnificent eye roll, combined with my mutter of "Jesus" under my breath. Some people have very little idea of how lucky they are not to go home without having been hit by an office chair.   So MAM with PPMS who needs two sticks now has a further issue: stairs. I've come to detest stairs. They have the ability to hurt my knee in a uniquely painful manner. I attempt to minimize this by using my arms on the banisters to take some of my weight. This only really works on the way down. On the way up, it's a matter of hauling myself along while trying to lessen the weight on my leg and the searing pain in my knee joint which it causes. I can't use my sticks, as I need to hold onto something. Remember the vertigo? I suppose I could try a treadmill. "You need a stair lift." "What is it I now need?" "A stair lift." So MAM with PPMS who needs two sticks becomes MAM with PPMS who needs two sticks and a stair lift. Excellent. To be fair, I rate the stair lift as one of the best inventions of mankind. Okay, there's the wheel, the car, sliced bread, gin, and the internet, but really, I can now get up and down stairs. It does however come with a few tiny issues. Issue one. The stair lifts are generally designed for the elderly and even more infirm than I; their operation reflects this. Incidentally, I have nothing against the elderly. Some of my oldest friends are elderly, and I hope to survive to join their ranks one day, PPMS permitting. Anyway, I press a button and go upstairs. Pause to count grains of sand. Nothing happens for what I'm told is five seconds. It seems infinitely longer. Nothing apart from a very loud screech from the unit, no doubt to warn any other parking elderly person in the vicinity that something's about to happen and that they should dive for cover. The screech is loud enough to hurt my ears. Dogs run down our road to get away from the sound, whilst bats, no doubt attracted by the high frequency, try to get in the window. Being of a practical nature, I've removed the cover, voided the warranty, and unceremoniously jammed an ear plug into the speaker. It dulled the screech a bit, but I can still hear it, as I suspect all the dogs in the neighborhood can.   Issue two. After a five second delay and the eardrums have perforated, we're moving. As far as I can detect, there are three speeds: very slow, slow, and a bit slow, like my walking these days. When the engineer came to fit and program the unit, I was watching it as it made its leisurely way up and down the stairs, configuring the motor all the climb and corners. "Can you make it go a bit quicker?" "No. Sorry. That's it." I'm in no position to argue. Without it I'm confined to one floor. Admittedly, it'd be one of my choosing.   Third issue. Speaking to the company which makes the stair lift. Again, don't get me wrong, I know they have a specific demographic they target for sale, and that's grand. What they do not appear to acknowledge is that everyone who needs a stair lift is stone deaf and has a man with a red flag to walk in front of their car. Indeed, I have the hearing of a bat, and until recently owned an extremely large and very fast motorcycle. That was another casualty of the MS progression. Anyway, I digress. An example will be the call to let me know when the engineer was arriving to install the lift. "Hello? Is that Mr. Daly?" The lady speaking clearly and louder than I would generally have expected. "It is," I find myself shouting a little, as if trying to join in. "Mr. Daly, we're arranging for our engineer, Adam," not his real name, "to attend tomorrow. Would you prefer AM or a PM visit?" "AM, please." "Great. Would 11 o'clock be a good time? That should give you plenty of times to get washed and dressed and have your breakfast." "Er, okay. That'll be fine."   I'm not used to this level of interest or consideration. Like most people, I normally have to endure the "We're unable to give you a time. AM or PM is best I can do." Appointment fixed; I wonder if I have time to nip out to get the engineer a gift. Nothing extravagant, you understand, just a token. "When Adam arrives, he'll show you his identification badge. If you're not completely happy, please give us a ring to confirm his ID is genuine. He won't mind waiting." "If I'm not happy, I'll bounce Adam down the drive." "I beg your pardon?" "Nothing. 11 o'clock tomorrow then. Yep." You see, everyone must be elderly if they have a stair lift. I've done the thing where you ask for a note that you put on your account, you know the sort of thing, "Please do not treat Ian as an elderly gentleman. He's not elderly, neither is he a gentleman." This makes not a blind bit of difference. It is extremely annoying, until there's a problem or you need something.   About a year ago, I was cruising up to the first floor, coffee in one hand, motorcycle helmet on in order to deaden the sound, and my finger on the requisite button. I arrived upstairs, where I spent some time playing with the internet and drinking coffee. On attempting my return journey, nothing. The whole thing was dead as a dodo. So I telephoned the company to advise them of my dilemma. "I'm trapped outside." I thought I'd go straight for the dramatic introduction, as it would raise a level of medium to high panic.   An entirely reasonable and professional sounding lady began slowly to talk me through a list of resolutions that must have previously worked. Not today though. "Are you able to get downstairs, Ian?" "Of course," my sarcasm nerve had now kicked in, "that's why we spent four and a half grand on a stair lift." "I beg your pardon?" "Nothing. Just thinking out loud. Not really, I'm pretty stuck here." "Okay. Then there's something we can try." The fix turned out to be opening the footrest and then slamming it closed. "As hard as you can." "Really?" "Yes, really." This I did. Everything lit up like a Christmas tree and the warning bleep felt compelled to join in. All sorted. Well, almost. Adam, not his real name, turned up the next day to replace the main circuit board, and at a prearranged time.   After a lot of inane rambling, my message here is if there's something, anything, which can make your life a little easier, then for the love of God, go for it. Walking stick, crutches, stair lift, car adaptations, grab rails, false limbs, parachutes; they're all there to enable you to, or at least some semblance of you. Use them. Walk or shuffle to the park. Point at pigeons with your stick. Make sarcastic comments to call center staff. The possibilities are endless. Life with MS is hard enough.   I was showering the other morning and dropped the soap, such a trivial thing for a non-MAM with PPMS. It's only a small shower cubicle, so I bent double to pick up the soap, slipped, and became wedged in the corner, and to all intents and purposes upside down. It was like being waterboarded. If it wasn't for the grab rail, I'd probably have drowned. How my partner and I laughed. Ian Daly, a middle-aged man with PPMS, who needs two sticks and a stair lift, and a non-slip mat in the shower, and grab rails in the said shower, plus a grab rail to [inaudible 00:32:39] and a stool for the shower.   Geoff Allix (32:43): Thank you very much for that. That was fantastic. So now that you've whet our appetite with that, how can people get hold of the book?   Nigel Bartram (32:54): Right, it'll be sold on Amazon in print form and also as an eBook. It's due come out on the 30th of May, which is World MS Day. I believe we chose the date in order hopefully to get a higher profile for it. So it'll be coming out shortly after, I think this podcast is released, won't it?   Geoff Allix (33:23): Yeah. Yeah. This is coming out May. So you mentioned at the end of May is World MS Day, and also I want to remind our listeners that May is Mindfulness and Meditation Month at OMS. And to mark that, you can tune into a special webinar on May the 17th featuring a live meditation session with Phil Startin. And if you're listening to this episode after May 17th, don't worry, you can view a replay of this or any webinars at any time. And details of registering for the free webinar as well as a link to replays of past webinars can be found in the show notes for this episode. And check out the OMS social channels for daily mindfulness tips that you can incorporate into your day. So Nigel, thank you so much for being our guest on Living Well with MS Coffee Break.   Nigel Bartram (33:23): Could I just interrupt you a second?   Geoff Allix (33:23): Yep, sorry.   Nigel Bartram (34:16): Your plug was instantly longer than mine.   Geoff Allix (34:16): I know.   Nigel Bartram (34:19): I must just add that just if you go onto Amazon and Google, put the search MS A Funny Thing, there won't be anything like it, so you don't need to remember the full title of the book.   Geoff Allix (34:35): And we will have links in the show notes as well actually, so you'd be able to get to the book no problem.   Nigel Bartram (34:35): Okay. Fantastic.   Geoff Allix (34:41): So one final thing that we normally ask our guests, which is a bit of a tradition that we have, which is that if you tap into your experience with MS generally and OMS specifically for a nugget of wisdom that could help people, particularly new people, adopt the OMS program, what would that advice be?   Nigel Bartram (35:04): One particular aspect or just one thing-   Geoff Allix (35:06): No, just anything that you think could help people who are maybe newly diagnosed or maybe new to the OMS program.   Nigel Bartram (35:16): I think I'd say two things, if I may.   Geoff Allix (35:18): Yeah.   Nigel Bartram (35:19): One is that although some people may find the diet difficult to come to terms with, there are so many great recipes that you can get through OMS. You won't be depriving yourself of an enjoyable gastronomy at all. And it is so utterly healthy that whether you had MS or not, it's such a good thing to do. The second thing I would say, and obviously I don't mean to plug your plug, but mindfulness is a real, real blessing because there are tough times. And being able to, I was going to use the word retreat, perhaps that's not the best verb to use; but anyway, to find a place to go to when you're in difficulty which you can emerge from tranquil and at ease with the world, having cured nothing other than maybe anxiety or stress, which is important in its own right, I'd highly recommend that.   Geoff Allix (36:29): With that, thank you very much for joining us, Nigel Bartram.   Nigel Bartram (36:34): A great, great pleasure. And do buy the book. And it comes complete with a testimonial from George Jelinek. Can I just read out what he says?   Geoff Allix (36:43): Absolutely. Yeah.   Nigel Bartram (36:45): Because he's got a bit of a teaser in there. "There are three things I like to say about Nigel's book. First, in medicine, we now understand that laughter is good medicine. This book is decidedly good for you. Secondly, all proceeds go to worthy MS charities. Win-win. Third, now, what was it, that third thing? I need to take Nigel's sage advice and stop nominating how many points I'm about to make, don't I?" In order to unpack and understand that last comment of George's, you'll need to buy the book and read the preface.   Geoff Allix (37:27): Okay. With that, thank you very much. And I would encourage everyone, search out the book on Amazon. Actually, I should say that you can do this thing called Smile at Amazon and you can nominate a charity. So not only does the money go to charity from the book, but actually everything that you buy from Amazon, you can nominate a charity, and OMS is one of the charities you can nominate, and a small amount of any shopping at Amazon would actually go to charity.   Nigel Bartram (37:55): So it's a win-win-win-win.   Geoff Allix (37:55): Thank you for listening to this episode of Living Well with MS Coffee Break. Please check out this episode's show notes at www.overcomingms.org/podcast. You'll find all sorts of useful links and bonus information there. Do you have questions about this episode, or do you or someone you know want to be featured in a future Coffee Break episode? Then email us at podcast@overcomingms.org. We'd love to hear from you. You can also subscribe to the show on your favorite podcast platform so you never miss an episode. Living Well with MS Coffee Break is kindly supported by a grant from the Happy Charitable Trust. If you'd like to support the Overcoming MS charity and help keep our podcast advertising free, you can donate online at www.overcomingms.org/donate.   To learn more about Overcoming MS and its array of free content and programs, including webinars, recipes, exercise guides, OMS Circles, our global network of community support groups, and more, please visit our website at www.overcomingms.org. While you're there, don't forget to register for our monthly e-newsletter, so you can stay informed about the podcast and other news and updates from Overcoming MS. Thanks again for tuning in, and see you next time.   The Living Well with MS family of podcasts is for private, non-commercial use, and exists to educate and inspire our community of listeners. We do not offer medical advice. For medical advice, please contact your doctor or other licensed healthcare professional. Our guests are carefully selected, but all opinions they express are solely their own and do not necessarily reflect the views or opinions of the Overcoming MS charity, its affiliates, or staff.  

Welcome to the NeurologyLive Mind Moments podcast. Tune in to hear leaders in neurology sound off on topics that impact your clinical practice.In this episode, we spoke with Barry Hendin, MD, clinical professor, University of Arizona; director, Multiple Sclerosis Clinic, Banner University Medical Center; and chief medical officer, Multiple Sclerosis Association of America. He shared his perspective on the recent World MS Day on May 30, the impact awareness efforts have had on care, and how treatment has evolved during his time as an MS physician. Thanks for listening to the NeurologyLive Mind Moments podcast. To support the show, be sure to rate, review, and subscribe wherever you listen to podcasts. For more neurology news and expert-driven content, visit neurologylive.com.

On Sunday's Hindsight, Rebecca O'Sullivan looked back at some of the biggest and some of the best stories of the week including the planned lifting of Covid-19 restrictions, a 67-year-old Kilmihil man's weeks-long wait before getting a vaccine appointment, World MS Day and the plans to develop and air taxi in Shannon!

On Friday's Morning Focus, Pat Flynn was joined by Margaret Lohan Gunning, a retired nurse who was diagnosed with progressive Multiple Sclerosis in 2010, after medication to slow down the effects of her MS proved to be ineffective. Pat was also joined by John McDonald, a regional community worker for MS Ireland. Both spoke about the impact of Multiple Sclerosis ahead of World MS Day on Sunday.

The 30th of May marks World MS Day which brings the global MS community together to share stories, raise awareness and campaign with everyone affected by multiple sclerosis. Joining Pat this morning was Susan Carey and Naomi Donaldson, both are living with MS,  and they both share their perspective on what it is like to live with the condition. Listen and subscribe to The Pat Kenny Show on Apple Podcasts, Google Podcasts and Spotify.      Download, listen and subscribe on the Newstalk App.    You can also listen to Newstalk live on newstalk.com or on Alexa, by adding the Newstalk skill and asking: 'Alexa, play Newstalk'.

Ricca di iniziative la Settimana Nazionale della Sclerosi Multipla in Italia e nel mondo con la Giornata Mondiale World MS Day. In questo episodio anche noi abbiamo voluto parlarne – semplicemente con un “centesimo di parola” – per sensibilizzare l’importanza della SM.  Abbiamo ospitato Federica, affetta da SM, che ci ha parlato liberamente e tranquillamente di se e delle sue condizione di salute. Buon Ascolto! Dani & Lia Riportiamo dal sito www.aism.it a sostegno delle donazioni in Italia Il 28, 29 e 30 maggio scegli gardensia, per le donazioni, per sostenere la ricerca scientifica sulla sclerosi multipla e garantire i servizi per le persone con SM sul territorio. Check the World MS Day site for donations towards MS. The National Week of Multiple Sclerosis (MS) in Italy and in the world, with the World MS Day, is full of initiatives. In this episode we wanted to talk about it – simply with a “penny of a word” – to raise awareness about MS. We hosted Federica, who lives with Multiple Sclerosis, as she spoke freely and honestly about herself and her health condition.  

How is the MS International Federation (MSIF) working to help the Multiple Sclerosis community? Josie Chadband, who works for the charity, gives us her insights and explains how this global effort is raising more funds than ever before, and supporting the MS Atlas, the Progressive MS Alliance and People with MS. I didn't realise the MSIF has existed since the sixties, did you? …  what else don't WE know?? As we draw nearer to closing this year's #The50kinMay in a few days time and with World MS Day just around the corner (30 May every year) this is an exciting episode to raise awareness of MS.   .. here's the charity donation page for Bron Webster: https://www.themay50k.com/fundraisers/bronwebster   To contact the podcast email: hello@multiplesuccess.co.uk To contact the producer and host, Bron Webster, call (UK) 07831 600673 To find out more online / other episodes visit https://www.multiplesuccess.co.uk  

As the United States begins to move past the pandemic and toward something much closer to life as we once knew it, I've received a lot of questions from members of the RealTalk MS listener community who are concerned about how their disease-modifying therapy may affect the efficacy of the COVID-19 vaccine, whether the authorized vaccines will protect them from variants, and whether they should continue wearing a mask, despite encouraging recommendations from the CDC. As Chair of the National MS Society's National Medical Advisory Committee, Dr. Nancy Sicotte also leads the MS Society's COVID-19 Vaccine Advisory Group. And Dr. Sicotte is joining me once again to answer your questions and resolve some of the confusion around these important topics.  We have a lot to talk about! Are you ready for RealTalk MS??! World MS Day is May 30th  :25 Dr. Sicotte answers your questions about Vaccines and DMTs, Variants, Masks, and More  3:03 Share this episode  24:04 Have a minute? Leave a rating & review for the podcast  24:25 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/195 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.comPhone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society COVID-19 Vaccine Guidance for People Living with MS FDA Advisory on Antibody Tests World MS Day Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating and Review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 195 Guests: Dr. Nancy Sicotte Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

Just in time for World MS Day, we take you to the forefront of research into lifestyle modification and its impact on MS health outcomes by welcoming Dr. Sandra Neate, Head of the Neuroepidemiology Unit (NEU) within the Melbourne School of Population and Global Health at the University of Melbourne in Australia. Dr. Neate and her team are undertaking some of the most forward-facing work in this field of MS research, so unfasten your scientific curiosity and tune into this episode.   Bio   Sandra is a clinician researcher who is the Head of the Neuroepidemiology Unit (NEU) within the Melbourne School of Population and Global Health at the University of Melbourne in Australia.  The NEU researches lifestyle related risk factors in MS and health outcomes and the experiences of people who adopt lifestyle modification. The NEU is also developing and researching novel ways to deliver evidence-based information about lifestyle modification to people with MS, including online modalities. Sandra's personal research interest is in talking with people with MS and their families regarding the experiences of lifestyle modification.   Questions   Welcome to the program Dr. Neate, or may I call you Sandra? You’re presently the head of the Neuroepidemiology Unit at the University of Melbourne, aka the NEU. Can you tell what the NEU actually is? Is the NEU carrying on the research studies begun by Professor George Jelinek, such as HOLISM and STOP-MS? What is the overarching aim of the NEU as a research body? Who are the researchers that work for the NEU? What kind of research projects is the NEU presently working on? The MS Online Course sounds fascinating… what do you think its future impact will be? The collaboration with the UK MS Registry sounds extremely promising too. What are your expectations for this relationship and how can it advance the cause of elevating lifestyle intervention or modification approaches? What’s on the horizon for the NEU? What kind of projects and collaborations are you shaping for the future? How does the NEU engage with OMS? What can the next generation realistically expect for MS treatment?   Links   Learn more about the NEU here and on the University of Melbourne School of Population and Global Health website Follow the NEU’s research updates on Twitter  Read about a recent study connecting fatigue and diet See Prof. George Jelinek’s publication links on PubMed   Episode Disclaimer   Please note that the online course Dr. Neate refers to in this episode is funded by OMS. OMS is excited to work with the NEU once the course is ready to be made more widely available.   Coming up on our next episode   Up next, we invite you to join us on May 31 (and anytime thereafter on your favorite podcast platform or the OMS website) for Living Well with MS Coffee Break #17. There and then, you’ll get inspired by Debbie Emick, a Colorado-based author and podcaster who have overcome multiple chronic illnesses by tapping into the mind-body connection.   Don’t miss out   Subscribe to this podcast and never miss an episode. You can catch any episode of Living Well with MS here or on your favorite podcast listening app. Don’t be shy – if you like the program, leave a review on Apple Podcasts or wherever you tune into the show. And feel free to share your comments and suggestions by emailing podcast@overcomingms.org.

In this episode, Oakley City Councilmember Sue Higgins talks about her dealings with Multiple Sclerosis and highlights World MS Day... we also talk about the City of Oakley and COVID-19 as she works in a hospital.    0:50 – Intro and World Multiple Sclerosis (MS) Day. We get into her dealing with an MS attack and what it does to someone. She talks about how she has been dealing with it since 2014. 05:45 – We talk about MS and National MS Society and how people can find folks locally to speak with and network. 07:19 – We get into City of Oakley… we chat about Skippolini’s coming to downtown.  We also get into business in the downtown such as the entrepreneur center. 12:02 – Higgins, who works in a hospital, she gets into the impact COVID-19. She was on the line to check for COVID-19 before employees entered the hospital. 17:45 – Covid-19 & City of Oakley response 22:53 – We get into the new Oakley Logistics Center on Bridgehead. 25:01 – Higgins provides an update on the park’s maintenance between Oakley & School District 25:57 – I ask what the deal is with this train station in downtown Oakley. 31:34 – Housing Development in Oakley, Developments keep coming in. 33:01 – We get into when Oakley Police may increase staffing. 35:15 – We get into the closing of the Oakley Chamber of Commerce and bring them back. How to get home based businesses to participate. 39:20 – I can’t even get on the city list for their annual survey. Attitude at City Hall needs to change and work on improving community communication. Higgins explain with social media, they can turn phones on, but people really do need to come to meetings and engage with the council and city hall.  We get into zoning and what Senator Wiener’s bill could do to property around BART. 45:55 – Oakley could be moving to District Elections 49:05 – I get into how Kevin Romick drives me nuts at times. 49:43 – We get into Higgins love of supporting local business – especially Lumpy’s Diner along with her love of bacon. We also get into La Gange, Brownstone Gardens, and Sabrina’s Pizza. 57:03 – Higgins highlights why she is a big supporter of Congressman Jerry McNerney.  We also get into Senator Steve Glazer, Assemblyman Jim Frazier and Supervisor Diane Burgis. We also talk Mark DeSaulnier. 1:07:30 – Higgins explains the glasses in photos.  

Today is World MS day, and In this episode I share with you a very personal journey of hope and healing, which relates to me living every day with Multiple Sclerosis for the past 14 years. Whenever I was diagnosed with MS August 2007, I lost all hope, I thought my life was over as I couldn't find anyone who had anything positive to say about living with the condition. My neurologist advised I change my job to something less stressful, stopped playing football as I wouldn't be able to, and pretty much, conditioned me to believe that things were going to get worse. It was a horrendous time in my life. Whenever one loses all hope in life, even existing and finding a reason to live becomes difficult. Thankfully for me, and after many years of research and soul searching, in April 2016, I decided to change direction in my approach to managing my condition, implementing a complete lifestyle change to managing my disease and facilitate the recovery process in my body. The good news is I have went onto make a remarkable recovery and my body continues to heal and repair every day. I am now 100% free from all medication, I've completed 7 Ironman triathlons, and at 42 years of age, I am full of hope, life and optimism for the future. This is a solocast, where I share some of my thoughts and ideas on how each of us can turn a personal tragedy, into a resounding life success story. I hope you get some value from this episode Keep the faith

#4: 9000 people in Ireland currently live with Multiple Sclerosis, the most common progressive, neurological condition in young adults in the country. For World MS Day, host Hayden Moore talks to Ballyboden resident Dorota Kenny about being diagnosed with MS, how her symptoms developed, offering advice for anybody just diagnosed with the the disease, and more. Also joining the show is the CEO of MS Ireland, Ava Battles, to talk about their Virtual Balloon Race on World MS Day to raise much needed funds for the upkeep of their services - which two-thirds of people diagnosed with MS in Ireland use.

As Saturday May 30th is World MS Day, Ava Battles Chief Executive at Multiple Sclerosis Society of Ireland joins Ivan to discuss. Listen and subscribe to The Hard Shoulder on Apple Podcasts, Google Podcasts and Spotify.      Download, listen and subscribe on the Newstalk App.     You can also listen to Newstalk live on newstalk.com or on Alexa, by adding the Newstalk skill and asking: 'Alexa, play Newstalk'.

Ahead of World MS Day this Saturday, Gavin has spoken with Samantha McCarthy from Ennis, who has Multiple Sclerosis, and with John MacDonald of MS Ireland's Mid-West Branch. Both told us about fundraisers - Sam's raising funds for MS Ireland and the Gavin Glynn Foundation at https://www.idonate.ie/fundraiser/11385199_samantha-mccarthy-s-page.html MS Ireland are holding a Virtual Balloon Race https://www.ms-society.ie/news/virtual-balloon-race For details on the supports available for people with MS, John said he can be reached 087 2502009

My guest is Dr. Ellen Mowry, a Professor of Neurology at Johns Hopkins University, where she also serves as the Director of the MS Experimental Therapeutics Program. Dr. Mowry has devoted her entire career to MS research, and her past research has led to breakthroughs in our understanding of MS. Today, Dr. Mowry is the co-principal investigator of an important research study whose outcome could have an impact on the treatment strategy for everyone diagnosed with MS. We're also talking about World MS Day festivities. A major MS conference has gone virtual this week. We'll tell you how you can attend for free!  And you'll learn about some outstanding new online resources -- webinars, presentations, and videos that you can access while you're at home. We have a lot to talk about! Are you ready for RealTalk MS??! Don't Miss These World MS Day Festivities  2:57 How You Can Attend a Free MS Conference  5:10 How You Can Attend a Free MS Patient Day Program  6:24 Catch All the Ask An MS Expert Video Replays  7:22 Catch All of the National MS Society's Exercise Videos  8:15 Register for these Can-Do MS Monthly Webinars  8:45 My Interview with Dr. Ellen Mowry  10:32 Share this episode  31:32 The National MS Society COVID-19 Response Fund  32:03 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/143 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society's Ask An MS Expert Video Replay What You Need to Know About Coronavirus (COVID-19) National MS Society COVID-19 Response Fund The TREAT-MS Clinical Trial for MS Patients World MS Day Tune In For MS Website Registration   World MS Day Tune In For MS Facebook Registration   2020 Consortium of MS Centers Virtual Annual Meeting Registration   2020 CMSC Virtual Patients Day Meeting Registration   National MS Society Video: Aerobic Exercise Tips for MS   National MS Society Video: Stretching Tips for MS   National MS Society Video: Breathing Tips for MS   Can-Do MS Webinar Series Registration Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating & Review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 143 Hosted By: Jon Strum Guests: Dr. Ellen Mowry Tags: MS, MultipleSclerosis, MSResearch, MSSociety, Coronavirus, COVID19, RealTalkMS Privacy Policy

My guests this week are 2 exceptional MS warriors, Mike Zimits and Cat Tsigakos. When Mike was diagnosed with MS, he decided he could best help himself by getting into shape, so he got on a bike. And then he convinced his friend's sister, Catherine, to get on a bike. Cat was serving as her brother's caregiver after he was diagnosed with progressive MS.   So these 2 people, who had each been affected differently by MS, went from being biking newbies to avid cyclists -- even taking on several stages of the Tour de France. They also raised more than one million dollars for MS research while reminding the world that having an MS diagnosis doesn't mean that you're no longer entitled to have hopes, dreams, and goals.      We're also taking a look back at this year's World MS Day, and talking about some of the 400 events that raised awareness about MS in 79 countries. We'll tell you about the MS stem cell research that's about to begin on the International Space Station. We'll review the outcome of a specific rehab treatment that's been shown to improve hand and upper limb ability among people living with MS. We'll let you know how you can participate in an important MS rehabilitation clinical trial. And we'll tell you about a research study that looked at the economic burden faced by people living with a minimal level of MS disability. The results might surprise you! We have a lot to talk about. Are you ready for RealTalk MS??! NEW! Download a transcript of this episode! ___________   World MS Day Recap -- Over 400 Events in 79 Countries  1:16 Stem Cells Travel to Outer Space for MS Research  3:52 Task-Oriented Upper Limb Rehab Program Delivers Results for People Living with MS   7:11 You Can Participate in the STEP For MS Study  9:53 Low MS Disability = A High Level of Economic Burden  13:14 My Interview with Mike Zimits & Cat Tsigakos  18:15 Have You Subscribed to RealTalk MS?  33:11  ___________ ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.comPhone: (310) 526-2283 ___________ LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Join Mike & Cat on Team MSAA Bike Rides The Effects of Microgravity on Microglia 3-Dimensional Models of Parkinson's Disease and Multiple Sclerosis Intensity-Dependent Clinical Effects of an Individualized Technology-Supported Task-Oriented Upper Limb Training Program in Multiple Sclerosis: A Pilot Randomized Controlled Trial STEP for MS Clinical Trial Eligibility Criteria & Trial Site Contact Information Economic Burden of Multiple Sclerosis in a Population with Low Physical Disability Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating & Review  NEW! Download a Transcript of This Episode ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 97 Hosted By: Jon Strum Guest: Mike Zimits & Catherine Tsigakos Tags: MS, MultipleSclerosis, MSResearch, MSAssociation, RealTalkMS

Broken permit process (1:30); Has the legal system helped to keep a known drug trafficker in Canada? (7:20); Food fare slapped with $10,000 fine (14:30); WFPS says meth use up 900% since 2014 (20:50); Greg tries to pay an ambulance bill (27:35); Meth use leading to more bike thefts (31:00); Melissa Kuhn shares her story ahead of World MS Day (41:35); Author Anakana Schofield (50:10); 

In this MS News Update, we share all about World MS Day on Thursday, May 28. We chat about this year's campaign theme, "My Invisible MS" as well as the campaign video. John also describes his invisible symptoms. To learn more about World MS Day 2019 or learn how you are able to participate, visit the World MS Day website. We encourage everyone living with MS and those who have family and friends living with MS, to wear orange as well as to share your story on social media. Be sure to tag your post with #MyInvisibleMS and #N2KwithSamandJohn. 

The International Progressive MS Alliance is an unprecedented and unparalleled global effort to understand and treat progressive MS.   Last week, I was in Copenhagen, Denmark, for an important meeting of the Progressive MS Alliance Scientific Steering Committee. And in today's episode, I'll update you on the status of three potentially breakthrough progressive MS international research projects.   Don't forget! World MS Day is Thursday, May 30, and we're talking with MS International Federation CEO, Peer Baneke, about why World MS Day is important, and how you can participate!   And this is your final reminder! You only have until May 31 to submit your entry to be my special guest on RealTalk MS Episode #100!  We have a lot to talk about. Are you ready for RealTalk MS??! You Can Be My Guest on RealTalk MS Episode 100  :59 Research Update from the International Progressive MS Alliance Scientific Steering Committee Meeting in Copenhagen, Denark  2:37   My World MS Day interview with MS International Federation CEO, Peer Baneke  15:07 ___________ ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.comPhone: (310) 526-2283 ___________ LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Be My Guest on RealTalk MS Episode #100 International Progressive MS Alliance Multiple Sclerosis International Federation World MS Day Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating & Review  ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 91 Hosted By: Jon Strum Guest: Peer Baneke Tags: MS, MultipleSclerosis, MSResearch, ProgressiveMS, MyInvisibleMS, MSIntFederation, RealTalkMS

I've invited a very special guest to talk about the subject that I've received -- by far -- the most requests to discuss on the podcast, and that's sexual function and MS.   We're also talking about the International Progressive MS Alliance's future strategies, World MS Day, and we're giving away an Amazon Echo Dot!   We have a lot to talk about! Are you ready for RealTalk MS? ____________ MS Conference Update  :51 International Progressive MS Alliance Announces Future Strategies  4:06 World MS Day  6:10 Win an Amazon Echo Dot  7:56 Interview with Stuart Nixon, MBE  11:06 ___________ LINKSIf your podcast app doesn’t show these links, you’ll find them in the show notes at www.RealTalkMS.com The International Progressive MS Alliance World MS Day The RealTalk MS Podcast Alexa Skill Enter to Win an Amazon Echo Dot ___________ Entering our Amazon Echo Dot Contest is Easy! 1. Visit www.realtalkms.com/contest 2. Click on the "View in iTunes" button on the left 3. If prompted to launch iTunes, click the "Launch Application" button 4. Click the "Subscribe" button 5. Click on "Ratings and Reviews" 6. Click the "Write a Review" button 7. Write a simple, honest review about the RealTalk MS podcast 8. Give us a rating from 1 to 5 stars (with 5 stars being the best) 9. Click "SUBMIT" 10. Send an email to contest@realtalkms.com. Include your email address and whatever name you left your review under THAT'S IT! Winner will be announced on the June 26th podcast. ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 37 Guest: Stuart Nixon, MBE Hosted By: Jon Strum Tags: MS, MultipleSclerosis, bringinguscloser, Alexa, AllianceCongress2018, RealTalkMS

World MS Day occurs annually on the 30th of May. But throughout the month of May, which starts on Tuesday, there are many MS events and campaigns.  World MS Day brings the MS Community together to share stories, raise awareness, and campaign with and for everyone affected by multiple sclerosis. The first World MS Day was created in 2009 by the MS International Federation. Since then, the World MS Day message has reached hundreds of thousands of people around the world, with a campaign focusing on a different theme each year. This year’s campaign is Bringing Us Closer and this year’s theme is research. MS International Federation provides a toolkit of free resources to help everyone to take part in World MS Day. Anyone can use these tools, or you can make your own, to create positive change in the lives of more than 2.3 million people around the world.Lincoln from MS Queensland joins the InvincAbility crew to discuss World MS Day 2018:

Here is an absolutely amazing, inspiring and awe striking woman, the fantabulous elite mountaineer, Lori Schneider who conquered the 7 summits. (She'll never call herself and elite athlete - but she is!) And how she finished it all off will surprise and inspire you. As journalist Tom Held of the Journal Sentinel said: ‘Schneider stepped to the summit of Mount Everest, in sunshine and bitter cold, on a Saturday morning becoming the first woman with multiple sclerosis to reach the roof of the world. Standing at 29,035 feet, the adventurer unfurled a banner for World MS Day, and then called her father, in Janesville from atop the mountain. Everest was the final peak in her quest to scale the seven summits, the tallest peak on each continent'. (http://archive.jsonline.com/news/health/45924582.html.) Lori developed a global case of wanderlust when she was 15 years old. Traveling to the all corners of the earth, she sought out interesting and unique cultures, people, and challenging experiences to steep herself in. One morning Lori awoke with numbness in over 50% of her body. Within two months, whatever it was had spread throughout her entire body. It turned out to be multiple sclerosis (MS). When the crippling shock of the diagnosis lessened long enough for her to see more clearly, Lori decided to accelerate her love of travel and mountains setting out to climb the highest peak on each continent. Nothing like a challenge With the highest peaks in Africa, Europe, South America, North America, Australia, Antarctica, and Asia under her belt, Lori became the first person in the world with MS to conquer the "Seven Summits.” Lori's message to adults and children alike, reminds us that if we believe, we can achieve. Lori is an elite mountaineer, educator, international speaker and advocate. Through her organization, “Empowerment Through Adventure,” she inspires others to take their own leap of faith, scaling life's mountains and obstacles, and climbing beyond their own preconceived limitations. She is also the author of several books, including More than a Mountain-Our Leap of Faith. Check out more of Lori here: http://www.lorischneider.net/About.htm http://www.empowermentthroughadventure.com/biography.htm Listen into this crazily incredible of physical prowess, falling down hard, and then lifting oneself back up both physically and mentally to achieve at the highest – no pun intended at all – heights. --- Support this podcast: https://anchor.fm/the-who-are-you-podcast/support

“Take a comprehensive economic approach to evaluating treatment cost-effectiveness in MS”. Jacqueline Palace (Consultant Neurologist, Nuffield Department of Clinical Neurosciences, University of Oxford) and Ruth Geraldes (Neurologist, Department of Clinical Neurosciences, University of Oxford) examine the economic burden of multiple sclerosis, which was debated at the international roundtable “Time Matters in MS”, organised by the BMJ and the JNNP on World MS Day 2017, in Lisbon. Read more, watch the videos and access all the information about the event on the JNNP's website special page: jnnp.bmj.com/pages/time-matters-in-ms/. “Time Matters in preventing disabilities from MS” was supported by an unrestricted educational grant from F. Hoffmann-La Roche and Roche Farmacêutica e Química.

Professor Emeritus Alastair Compston (University of Cambridge) discusses with JNNP’s Publisher Janet O'Flaherty the issues raised by the discussion “Brain health matters in multiple sclerosis” (MS), which was part of the international roundtable “Time Matters in MS”, organised by the BMJ and the JNNP on World MS Day 2017, in Lisbon. Read more, watch the videos and access all the information about the event on the JNNP's website special page: http://jnnp.bmj.com/pages/time-matters-in-ms/. “Time Matters in preventing disabilities from MS” was supported by an unrestricted educational grant from F. Hoffmann-La Roche and Roche Farmacêutica e Química.

On the heels of World MS Day, a globally recognized awareness day for people living with multiple sclerosis, comes a new global initiative. Sanofi Genzyme has launched vs.MS, a campaign to shed light on and address the physical and emotional … Continue reading →

Today was world MS day and this year the slogan was 'I Have MS, It Doesn't Have Me.' We spoke with Taragh Donohoe of MS Ireland and Orla Coffey who was diagnosed with MS just before she did her leaving cert 10 years ago.