POPULARITY
35 episodes with ocrevus
12 episodes with ocrevus
5 episodes with ocrevus
6 episodes with ocrevus
2 episodes with ocrevus
2 episodes with ocrevus
3 episodes with ocrevus
2 episodes with ocrevus
5 episodes with ocrevus
In this episode, I'm thrilled to sit down with Ashley Knapp, infusion nurse and co-founder of Local Infusion, to discuss how ambulatory infusion centers are revolutionizing MS treatment. We explore why infusions for multiple sclerosis (MS) are often easier, more affordable, and more comfortable when done at outpatient infusion centers compared to hospitals. Ashley shares expert insights on gaining faster access to MS infusion therapies like Tysabri, Ocrevus, and Briumvi, plus how Local Infusion is setting up possibilities for overcoming common barriers like transportation and insurance authorizations. If you're seeking practical strategies to improve your MS care, reduce costs, and enjoy a better patient experience, this episode is packed with resources to empower your MS journey, boost your quality of life, and help you stay consistent with your treatment! About Ashley Knapp: Ashley Knapp is co-founder of Local Infusion and a registered nurse with over 13 years of experience in the infusion industry. Ashley started her career as an infusion nurse, specifically caring for patients with multiple sclerosis, and has since built local infusion into a rapidly expanding network of over 30 ambulatory infusion centers across nine states. Resources mentioned in the episode: Getting Started with Local Infusion: https://mylocalinfusion.com/get-started/ Connect with Ashley: Website: https://mylocalinfusion.com/ Additional Resources: https://www.doctorgretchenhawley.com/insider Reach out to Me: hello@doctorgretchenhawley.com Website: www.MSingLink.com Social: ★ Facebook: https://www.facebook.com/groups/mswellness ★ Instagram: https://www.instagram.com/doctor.gretchen ★ YouTube: https://www.youtube.com/c/doctorgretchenhawley?sub_confirmation=1 → Game Changers Course: https://www.doctorgretchenhawley.com/GameChangersCourse → Total Core Program: https://www.doctorgretchenhawley.com/TotalCoreProgram → The MSing Link: https://www.doctorgretchenhawley.com/TheMSingLink
This week I'm talking to Amy Winterbourne, a mother of two from Watford, about her experience breastfeeding after being diagnosed with multiple sclerosis (MS). Amy shares her journey of breastfeeding her eldest son, William, until he was two and a half, and how she weaned him gently during her pregnancy with her younger son, James. She then delves into her MS diagnosis when James was nearly one, describing the initial symptoms, the process of diagnosis, and her concerns about continuing to breastfeed while undergoing treatment. Despite initial advice to stop breastfeeding, Amy sought further information and found it possible to safely continue. She also discusses the complexities of parenting with MS, the support from her work, and her ongoing commitment to breastfeeding. My new picture book on how breastfeeding journeys end, The Story of Jessie's Milkies, is available from Amazon here - The Story of Jessie's Milkies. In the UK, you can also buy it from The Children's Bookshop in Muswell Hill, London. Other book shops and libraries can source a copy from Ingram Spark publishing.You can also get 10% off my books on supporting breastfeeding beyond six months and supporting the transition from breastfeeding at the Jessica Kingsley press website, that's uk.jkp.com using the code MMPE10 at checkout.Follow me on Instagram @emmapickettibclc or find out more on my website www.emmapickettbreastfeedingsupport.com Resources mentioned - The UKDILAS service https://www.sps.nhs.uk/home/about-sps/get-in-touch/medicines-information-services-contact-details/breastfeeding-medicines-advice-service/ (health professionals and breastfeeding supporters make contact on behalf of parents).The Breastfeeding Network Drugs in information service: https://www.breastfeedingnetwork.org.uk/drugs-factsheets/MS Society https://www.mssociety.org.uk/Facebook groups - MuMS UK - https://www.facebook.com/groups/351614711568755/MS UK - https://www.facebook.com/groups/MSUK1/Breastfeeding and pregnancy on Ocrevus, Rituxan and Kesimpta -https://www.facebook.com/groups/412257639666264/ This podcast is presented by Emma Pickett IBCLC, and produced by Emily Crosby Media.
Send us a textIn this special episode of The Just MS Show, we explore the groundbreaking advancements in Multiple Sclerosis (MS) research that are changing lives and redefining what's possible.We cover:The paradigm shift: How B-cells—not T-cells—are the true culprits behind MS, and how this discovery has led to life-changing treatments like Ocrevus and Kesimpta.The EBV connection: Why Epstein-Barr Virus is now considered the leading cause of MS, and how this could lead to a preventative vaccine.Myelin repair therapies: From over-the-counter drugs like clemastine to next-gen breakthroughs like PIPE-307, stem cell grafts, and microglia modulation.Disease-modifying therapies (DMTs): New drugs like Tolebrutinib and CNM-Au8 that are slowing or reversing MS progression.Emerging trends: Using fMRI to track cognitive decline, the impact of mental health on fatigue, and how GLP-1 weight-loss drugs could reduce MS risk.Patient-focused care: Insights on treatment preferences, postpartum considerations, and financial relief through Medicare changes.This isn't just another research update—it's a roadmap to what may soon be a world where MS is preventable, treatable, and even curable.This episode was made with A.I. to help
Every five minutes, someone somewhere in the world is diagnosed with MS. But getting that diagnosis can be challenging. And the evidence is clear that early intervention makes a difference. The sooner someone can begin a disease-modifying therapy, the better their outcome is going to be. World MS Day is May 30th, and this year, World MS Day is focused on eliminating the obstacles that get in the way of a timely and accurate diagnosis. I thought World MS Day would be the perfect time to invite Meredith O'Brien to join me to discuss her new book, Uncomfortably Numb 2: An Anthology for Newly-Diagnosed MS Patients. We'll also explain how the drastic cuts to Medicaid funding that were approved by the U.S. House of Representatives will affect hundreds of thousands of people with MS, and how the additional changes made to the Affordable Care Act will leave millions of Americans without health insurance. We're sharing the results of a study that may have identified how B-cells infected by the Epstein-Barr Virus migrate into the brain. And we'll explain why that could be the activity that triggers MS. We'll tell you about a study that makes the case for treating pediatric MS with Ocrevus. And we'll share the results of a study that discovered an association between inflammation-causing molecules and frailty among people with relapsing forms of MS. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: World MS Day :22 U.S. House of Representatives Vote to Gut Healthcare in America 2:29 Get involved! Become an MS Activist today! 3:38 A research team has demonstrated how EBV-infected B-cells migrate to the brain 4:28 Researchers demonstrate the efficacy of Ocrevus in treating pediatric MS 7:13 Researchers show an association between frailty and an inflammatory molecule 8:57 Meredith O'Brien discusses her new book, Uncomfortably Numb 2: An Anthology for Newly-Diagnosed MS Patients 11:05 Share this episode 24:51 Have you downloaded the free RealTalk MS app? 25:12 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/404 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Become an MS Activist Web: https://nationalmssociety.org/advocacy World MS Day https://worldmsday.org Uncomfortably Numb 2: An Anthology for Newly-Diagnosed MS Patients https://amazon.com/Uncomfortably-Numb-Anthology-Newly-Diagnosed-Patients/dp/1954332580/ref=sr_1_1 STUDY: Epstein-Barr Virus Induces Aberrant B Cell Migration and Diapedesis Via FAK-Dependent Chemotaxis Pathways https://nature.com/articles/s41467-025-59813-z STUDY: Ocrelizumab for Relapsing Pediatric Multiple Sclerosis https://sciencedirect.com/science/article/abs/pii/s2211034825002810 STUDY: Association Between Frailty and Inflammatory Cytokines in Patients with Multiple Sclerosis: A Case-Control Study https://sciencedirect.com/science/article/abs/pii/s1043466625000924 Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 404 Guest: Meredith O'Brien Privacy Policy
Last week, at the American Academy of Neurology annual meeting, Dr. Amit Bar-Or received the John Dystel Prize for Multiple Sclerosis Research for his multiple achievements that have advanced our knowledge of neuroimmunology, precision medicine, and biomarkers in MS. We talked with Dr. Bar-Or about how some of the latest discoveries in MS research would impact patient care. Tolebrutinib, an investigational disease-modifying therapy, is currently making its way through the FDA's regulatory process. Last week, the results of the Phase 3 clinical trials for Tolebrutinib were published, and we're sharing the details. We'll also tell you about MindGlide, an AI-powered tool for analyzing MRI scans that will significantly reduce MRI exam times. We're talking about the results of the Phase 3 clinical trial for high-dose Ocrevus. And we'll tell you about a cell therapy that doesn't use stem cells that successfully repaired myelin in the mouse model of MS -- twice! We have a lot to talk about! Are you ready for RealTalk MS??! Congratulations to Dr. Stephen Hauser and Dr. Alberto Ascherio :22 This Week: The impact of breakthrough MS research on MS care 2:17 Results of the phase 3 clinical trials for Tolebrutinib have been published 3:07 An AI-powered tool for analyzing MRI scans will significantly reduce MRI exam times for patients 4:21 Results of the phase 3 clinical trial for high-dose Ocrevus 8:13 A cell therapy that doesn't use stem cells has successfully repaired myelin in the mouse model of MS -- twice! 10:14 Dystel Prize winner Dr. Amit Bar-Or discusses how some of the latest discoveries in MS research will impact MS care 12:39 Share this episode 22:36 Have you downloaded the free RealTalk MS app? 22:56 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/397 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Become an MS Activist Web: https://nationalmssociety.org/advocacy Email: msactivist@nmss.org RealTalk MS Episode 310: The Face Laughs While The Brain Cries: The Education of a Doctor with Dr. Stephen Hauser https://realtalkms.com/310 RealTalk MS ECTRIMS Extra: Results from the Phase 3 Clinical Trial for Tolebrutinib and Relapsing-Remitting MS with Dr. Jiwon Oh https://realtalkms.com/ectrims244 VIDEO: RealTalk MS ECTRIMS Extra: Results from the Phase 3 Clinical Trial for Tolebrutinib and Relapsing-Remitting MS with Dr. Jiwon Oh https://youtu.be/zcBmAHRTotA VIDEO: RealTalk MS ECTRIMS Extra: Results from the Phase 3 Clinical Trial for Tolebrutinib and Nonrelapsing Secondary Progressive MS with Dr. Robert Fox https://youtu.be/tJQ93qdlXrU STUDY: Tolebrutinib Versus Teriflunomide in Relapsing Multiple Sclerosis https://nejm.org/doi/full/10.1056/NEJMoa2415985 STUDY: Tolebrutinib in Nonrelapsing Secondary Progressive Multiple Sclerosis https://nejm.org/doi/full/10.1056/NEJMoa2415988 Enabling New Insights from Old Scans By Repurposing Clinical MRI Archives for Multiple Sclerosis Research https://www.nature.com/articles/s41467-025-58274-8 Fibroblast Technology https://fibrobiologics.com/technology/#cnsms Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 398 Guests: Dr. Amit Bar-Or Privacy Policy
Warrior: Larry Powalisz AI: Primary Progressive Multiple Sclerosis HSCT: May 2022 Superpower: humbled by MS How dedicated are you to health and wellness? How committed are you to helping people halt autoimmune disease? After Larry's left hand went numb and he was diagnosed with MS, the only option his neurologist offered was Ocrevus. His research led him to HSCT at Clinica Ruiz. Upon returning home, Larry was inspired to help others gain access to HSCT and he founded a nonprofit organization to help cover the costs, but soon learned that fundraising for HSCT was not enough. He then founded Adia Med, now a publicly traded company to offer HSCT and other treatments to people battling autoimmune diseases. Tune in to learn more about Larry's journey with HSCT, how he is a guinea pig at Adia, and his dedication to making HSCT more accessible to individuals with autoimmune disease. Be sure to visit our website, HSCTWarriorsPodcast.org where you can find notes from today's episode, submit ideas or feedback, or connect with HSCT Warriors, Inc. and schedule time to “Talk with a Warrior”, find the latest research and resources, or explore information about locations. Special thanks to musical genius Billy Alletzhauser for sharing his superpowers to produce the soundtrack, and to audio guru Jacob Kinch for engineering the audio to make this podcast possible. You can find us when you subscribe on SoundCloud, iTunes or wherever you find podcasts. It has been great to connect with Warriors worldwide, so please reach out if you're interested in sharing your story. We would love to learn how the podcast has helped your journey with autoimmune disease so if you could take a moment, leave us a comment on instagram or share feedback on our website. We hope you'll tune in next Wednesday for another episode, highlighting another HSCT Warrior. Until then, be a snowflake and embrace your superpowers. Be kind. Be well. _________________________________ Jen Stansbury Koenig and the producers disclaim medical influence and responsibility for any possible adverse effects from the use of information contained herein. If you think you have a medical problem, please contact a licensed physician. Resources: Adia Med outpatient HSCT clinic in Winter Park, Florida MS Heal the World nonprofit organization MS Hope and the Best Bet Diet for MS Brandon Bieber, neurologist Aaron Boster, neurologist Richard Burt, Everyday Miracles
In de donkere en koudere maanden keren we letterlijk en figuurlijk naar binnen. De herfst en winter nodigen uit tot verstilling en reflecteren. Net als in de natuur is het loslaten geblazen en bereiden we ons onder de kerstboom of 'n dekentje op de bank voor op de meer uitbundige seizoenen. Want: in de lente en zomer moeten we er weer veel op uit. Húp, naar buiten, onder de mensen zijn en het leven vieren! Tja. Nee dus. Bij mij werkt het sinds een paar jaar niet meer zo. Als de temperatuur stijgt en half Nederland naar het strand scheurt, op een festival staat of 'n BBQ-feestje heeft met vrienden, lig ik in mijn eentje in m'n hangmat in de schaduw of onder de airco met de gordijnen dicht. Hitte maakt de MS heviger en mij dus zieker. Sinds ik Ocrevus krijg toegediend, ben ik in het begin van de herfst ook enorm aan het stoeien met mijn gezondheid. Gelukkig slaat dat halverwege het seizoen om en huppel ik de winter in. Dan voel ik me weer sterk en fit en ben ik zoveel mogelijk buiten. Naar binnen keren en reflecteren doe ik elke dag en aan het einde van het jaar heus een beetje extra. Net als het leven vieren. Zo werkt het voor mij. En ik leef m'n leven dan ook graag op mijn manier. Ik wil het ‘anders' en mijn lijf vraagt om ‘anders'. ‘Anders' omdat ik afwijk van hoe de meeste mensen het doen en van 'hoe het heurt'. Maar, wie bepaalt dat eigenlijk? Ik dus. It's my lijf/life. Lekker hoor!
Good morning from Pharma and Biotech Daily: the podcast that gives you only what's important to hear in Pharma and Biotech world.Roche CEO opposes Novo Holdings' acquisition of Catalent, urging for it to be blocked. Roche exceeded Q3 sales expectations, driven by the success of drugs like Ocrevus and Vabysmo. Pfizer's RSV vaccine has been approved by the FDA for a wider adult population. Novo Nordisk has raised concerns with the FDA about the complexity of compounders producing its drug Semaglutide. Alto Neuroscience's depression treatment did not meet expectations in a mid-stage trial, echoing Acelyrin's setback last year. Trilink Biotechnologies has launched customized mRNA sets for screening studies. Updates on Trodelvy's withdrawal for bladder cancer, Sage Therapeutics' layoffs, and more are also featured. Pfizer has downsized with 75 job cuts at a North Carolina site. Opportunities in the life sciences industry are also highlighted.Thank you for listening to Pharma and Biotech Daily, stay tuned for more updates.
MS-Perspektive - der Multiple Sklerose Podcast mit Nele Handwerker
Erfahre mehr über B-Zell-Depletionen, wie Ocrevus, Kesimpta, Bonspri, Mabthera, Rituxan und Briumvi, für aktive RRMS & SPMS und frühe PPMS. Du kannst den vollständigen Beitrag auf meinem Blog nachlesen: https://ms-perspektive.de/274-b-zell-depletion B-Zell-Depletions-Therapien wie Ocrelizumab (Ocrevus), Ofatumumab (Kesimpta, Bonspri), Rituximab (Mabthera, Rituxan) und Ublituximab (Briumvi) sind zu wichtigen Instrumenten bei der Behandlung von Multipler Sklerose (MS) geworden. Diese Behandlungen zielen speziell auf B-Zellen ab, eine Art von Immunzellen, die am Entzündungsprozess von MS beteiligt sind, und reduzieren diese. B-Zell-Therapien gelten als einige der spezifischsten und wirksamsten verlaufsmodifizierenden Therapien, die heute verfügbar sind, und bieten einen maßgeschneiderten Ansatz zur Verringerung der Krankheitsaktivität und des Fortschreitens der MS. In diesem Beitrag geht es darum, wie diese Therapien innerhalb der MS-Behandlungsoptionen eingeordnet werden und was ihr Zulassungsstatus und ihre Wirksamkeit für verschiedene Patientengruppen bedeuten. Bitte beachte, dass ich hier nur einen Überblick geben kann. Deine Neurologin und MS-Schwester sollten dich ausführlich über die richtige Therapie für dich beraten. Sie kennen deinen allgemeinen Gesundheitszustand und du solltest auch über deine Ziele, Wünsche, Ängste und Vorlieben sprechen, damit diese berücksichtigt werden können. Inhaltsverzeichnis Allgemeine Informationen Wie werden B-Zell-Depletionen - Ocrelizumab (Ocrevus), Ofatumumab (Kesimpta, Bonspri), Rituximab (Mabthera, Rituxan), Ublituximab (Briumvi) in den Immuntherapien eingeordnet? Wofür sind B-Zell-Depletionen - Ocrelizumab (Ocrevus), Ofatumumab (Kesimpta, Bonspri), Rituximab (Mabthera, Rituxan), Ublituximab (Briumvi) zugelassen? Wie sieht die Situation für spezielle Patientengruppen aus? Wer sollte Ocrelizumab (Ocrevus), Ofatumumab (Kesimpta, Bonspri), Rituximab (Mabthera, Rituxan), Ublituximab (Briumvi) vermeiden? Wie wirken Ocrelizumab (Ocrevus), Ofatumumab (Kesimpta, Bonspri), Rituximab (Mabthera, Rituxan) und Ublituximab (Briumvi)? Wie wird es eingenommen? Wie wirksam sind Ocrelizumab (Ocrevus), Ofatumumab (Kesimpta, Bonspri), Rituximab (Mabthera, Rituxan), Ublituximab (Briumvi)? Risiken und Nebenwirkungen von Ocrelizumab (Ocrevus), Ofatumumab (Kesimpta, Bonspri), Rituximab (Mabthera, Rituxan), Ublituximab (Briumvi) Impfungen Quellen Schlussbemerkung Quellen Für die Erstellung des Inhalts habe ich folgende Quellen verwendet: Vorlesung über pädiatrische Multiple Sklerose von Prof. Dr. Jutta Gärtner im Rahmen des Masterstudiengangs Multiple-Sklerose-Management Vorlesung über B-Zell-depletierende Therapien von Prof. Dr. Xavier Montalban im Rahmen des Masterstudiengangs Multiple-Sklerose-Management Qualitätshandbuch der KKNMS zu Ocrelizumab (Ocrevus), Ofatumumab (Kesimpta, Bonspri), Ublituximab (Briumvi) MS-Selfie-Infokarten von Prof. Dr. Gavin Giovannoni Deutschsprachiges Multiple Sklerose und Kinderwunschregister (DMSKW) Deutsche DECIMS-Informationen zu Ocrelizumab --- Vielleicht möchtest du auch einen Blick auf die Beiträge zu den anderen Immuntherapien werfen: #256: Dimethylfumarat (Tecfidera) und Diroximelfumarat (Vumerity) #258: Glatirameracetat (Copaxone, Brabio) #261: Interferon-beta (Avonex, Betaferon, Extavia, Plegridy, Rebif) #264: Teriflunomid (Aubagio) #266: Natalizumab (Tysabri, Tyruko) #268: S1P-Modulatoren – Fingolimod (Gilenya), Ozanimod (Zeposia), Ponesimod (Ponvory), Siponimod (Mayzent) #270: Alemtuzumab (Lemtrada, Campath) bei hochaktiver Multipler Sklerose #272: Cladribin (Mavenclad, Leustatin, Litak) bei hochaktiver MS Bis bald und mach das Beste aus Deinem Leben, Nele Mehr Informationen und positive Gedanken erhältst Du in meinem kostenlosen Newsletter. Hier findest Du eine Übersicht zu allen bisherigen Podcastfolgen.
Welcome to Living Well with MS, the podcast that empowers you to take control of your health and wellbeing. Today we're sharing the highlights from our ‘Ask Aaron' webinar, recorded in front of a global audience, with the incredible Dr Aaron Boster. Dr Boster is a board-certified neurologist who specialises in MS, and we're delighted to have him answering a huge range of questions from our community! From medications to MRI's and pregnancy to cold showers, Dr Boster gave us so many brilliantly informative answers - we hope you find this episode really useful. Let us know what you think! Watch this episode on YouTube here. Keep reading for the key episode takeaways. Topics and Timestamps: 01:49 Defining benign MS 05:05 How to get the most out of your time with your neurologist 09:32 The DMTs that help with brain atrophy 09:46 MRI's as a way to show the rate of brain atrophy 18:20 Aubagio for secondary progressive MS 22:11 The future of Ocrevus dosing guidelines and becoming pregnant on ocrelizumab 26:31 Treating MS-relating dystonia 28:37 Treatments for MS-related bladder dysfunction 35:15 Low-dose Naltrexone for MS 39:00 The benefits of cold showers 39:38 Immune reconstitution therapies 43:22 Managing MS with diet and exercise To join us live for the next webinar or watch the original presentation head to our website overcomingms.org More info and links: Dr Boster was on five previous Living Well with MS episodes: S1E11: Making the Right Medication Choices S2E17: Lifestyle Choices and Their Impact on MS S3E43: Let's Talk About Sex (and MS) S5E5 Webinar highlights from Ask Aaron with Dr. Aaron Boster S5E36 Webinar Highlights: Ask a Neurologist with Dr Aaron Boster Check out Dr Boster's popular YouTube channel covering all aspects of MS New to Overcoming MS? Visit our introductory page Connect with others following Overcoming MS on the Live Well Hub Visit the Overcoming MS website Follow us on social media: Facebook Instagram YouTube Pinterest Don't miss out: Subscribe to this podcast and never miss an episode. Listen to our archive of Living Well with MS episodes here. If you like Living Well with MS, please leave a 5-star review. Feel free to share your comments and suggestions for future guests and episode topics by emailing podcast@overcomingms.org. Make sure you sign up to our newsletter to hear our latest tips and news about living a full and happy life with MS. Support us: If you enjoy this podcast and want to support the ongoing work of Overcoming MS, we would really appreciate it if you could leave a donation here. Every donation, however small, helps us to share the podcast with more people on how to live well with MS.
When it comes to living your best life when you're living with MS, the first step is to make smart lifestyle choices. Maintaining a healthy lifestyle doesn't require pills, injections, or infusions. And making smart lifestyle choices can make a real, measurable difference in your quality of life. Joining me to talk about the benefits of maintaining a healthy lifestyle and share some tips and strategies for living your best life when you're living with MS is Dr. Lisa Doggett, a family and lifestyle medicine physician at the MS and Neuroimmunology Center at Dell Medical School at the University of Texas at Austin. Dr. Doggett was diagnosed with MS in 2009, and she's the author of the memoir, ‘Up the Down Escalator: Medicine, Motherhood, and Multiple Sclerosis'. We'll also tell you about a research team that's looking to improve the way that stem cells are transplanted -- and why that's a good thing for people with MS. We'll share the details behind the European Union's approval of a new Ocrevus formulation that makes the DMT much more patient-friendly. You'll hear about the blood test for measuring a biomarker that can predict future MS disease worsening that has just gained approval in the European Union. And we'll tell you where to find the video replay of Mobility Challenges in Progressive MS, the most recent webcast hosted by the International Progressive MS Alliance. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: Lifestyle changes that will improve your quality of life :22 Researchers receive a grant to develop a better way to transplant stem cells 1:30 Subcutaneous Ocrevus has been approved in the European Union 3:50 Blood test to measure a biomarker that can predict future MS disease worsening receives approval in the European Union 5:35 Catch the video replay of the latest Progressive MS Alliance webcast 7:13 Dr. Lisa Doggett offers strategies for making lifestyle choices that will make a difference in your quality of life 8:20 Share this episode 26:50 Next Week: Dr. Jaime Imitola introduces us to VISIBL-MS 27:10 Have you downloaded the free RealTalk MS app? 27:39 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/357 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com VIDEO REPLAY of the International Progressive MS Alliance Global Webcast: Mobility Challenges in Progressive MS https://youtube.com/watch?v=YGA-2k9JCLg&t=14s Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 357 Guests: Dr. Lisa Doggett Privacy Policy
Lower levels of Vitamin D have been associated with a higher risk of developing MS and an increase in MS disease activity. And, for years, scientists have worked to better understand the relationship between Vitamin D and MS. Joining me to talk about the role that Vitamin D plays in MS is Dr. Ellen Mowry. Dr. Mowry is a Professor of Neurology and Epidemiology, and the Co-Director of the Multiple Sclerosis Precision Medicine Center of Excellence at Johns Hopkins University. Dr. Mowry is also one of the leading experts on Vitamin D and MS in the world. The National MS Society's virtual MS Activist Rally is happening in just two days, on April 25th! We're sharing registration details. We'll tell you about a scientific breakthrough that has identified a specific autoantibody signature that can accurately predict MS years before someone experiences any MS symptoms. We're sharing details of a clinical trial that focused on the efficacy of Ocrevus in treating Black and Hispanic people living with MS. We'll also share the details of this trial's novel design that can serve as a blueprint for successfully engaging members of minority communities in future clinical research. We'll explain one reason why we aren't hearing as much news about the benefits of using cannabis to treat MS symptoms, and why cannabis use may actually be creating a new set of problems for people living with MS. And we're sharing study results that show that an artificial intelligence program may have a better bedside manner than your neurologist. We have a lot to talk about! Are you ready for RealTalk MS??! Don't miss it! The MS Activist Rally is happening on 4/25! :22 This Week: The relationship between Vitamin D and MS 2:50 Autoantibody signature predicts MS years before symtoms develop 3:45 Clinical trial results show that Black and Hispanic people with MS respond well to Ocrevus 7:58 Is cannabis working for people with MS? 11:13 Study results show that ChatGPT answers questions about MS with more empathy than neurologists 14:28 Dr. Ellen Mowry updates us on what the latest research is revealing about Vitamin D and MS 18:31 Share this episode 32:06 Have you downloaded the free RealTalk MS app? 32:26 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/347 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com REGISTER for the MS Activist Rally https://events.zoom.us/ev/Ame2jWSuHmriG94cyQmlWHr45mgnzxkDv8oMZRGsrS3ZxiSj5rro~Anqb3dHg3ewiz4KNHn2Ena4bgli_WXlza_zcygZN3GinnleB6rO15OCzGQ STUDY: An Autoantibody Signature Predictive of Multiple Sclerosis https://www.nature.com/articles/s41591-024-02938-3 RealTalk MS Episode 346: Why Members of Minority Communities May Face a More Severe MS Disease Course with Dr. Annette Langer-Gould https://realtalkms.com/346 STUDY: ChatGPT vs Neurologists: A Cross-Sectional Study Investigating Preference, Satisfaction Ratings, and Perceived Empathy in Responses Among People Living with Multiple Sclerosis https://link.springer.com/article/10.1007/s00415-024-12328-x Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 347 Guest: Dr. Ellen Mowry Privacy Policy
MDJ Script/ Top Stories for April 2nd Publish Date: April 2nd Commercial: From the Ingles Studio, Welcome to the Marietta Daily Journal Podcast. Today is Tuesday, April 2nd, and Happy heavenly Birthday to Marvin Gaye ***04.02.24 – BIRTHDAY – MARVIN GAYE*** I'm Dan Radcliffe and here are the stories Cobb is talking about, presented by Credit Union of Georgia. One Injured in Shooting at Marietta Laundromat One Arrested After Domestic Dispute Leads to SWAT Response Kennesaw House Fire Leaves Five People Without a Home All of this and more is coming up on the Marietta Daily Journal Podcast, and if you are looking for community news, we encourage you to listen and subscribe! BREAK: CUofGA STORY 1: One Injured in Shooting at Marietta Laundromat A dispute over money at a Marietta laundromat turned violent when an argument between two acquaintances, Corey Jones, 31, and Billie Higdon, 71, escalated into gunfire. The confrontation, occurring in the parking lot of the QT Coin and Laundry, led to Jones being shot in the arm. He was rushed to the hospital with injuries deemed non-life-threatening. Higdon was apprehended by the police for questioning regarding the incident. Marietta Police Department's spokesperson, Officer Chuck McPhilamy, indicated that charges against Higdon are expected but will be finalized later. Witnesses highlighted the financial disagreement as the root cause of the altercation. STORY 2: One Arrested After Domestic Dispute Leads to SWAT Response In Marietta, a domestic dispute at Laurel Hills Preserve apartments escalated into a standoff, necessitating intervention by the Marietta Police Department's SWAT team. The situation unfolded Sunday evening after a report of a physical altercation between partners, resulting in one person's injury. Aleigha Ward, 31, barricaded herself inside, refusing cooperation and vowing to avoid jail at all costs. Despite negotiations, Ward, who was armed and made threats captured on bodycam footage, remained defiant. The standoff concluded around midnight when SWAT successfully apprehended Ward without further incident. She now faces charges including terroristic threats and misdemeanor battery, with her bond set at $2,420. STORY 3: Five People Displaced by Kennesaw House Fire A house fire in Kennesaw on Saturday night led to five people being displaced. Responding swiftly, Cobb County Fire crews arrived within six minutes and managed to put out the fire in roughly 30 minutes. According to Nick Danz, the public information officer for the department, there's suspicion that natural gas contributed to the fire's rapid spread, following a loud pop reported by residents. The incident began outside the home before engulfing it. In a stroke of good fortune, the family dog was found and rescued during a follow-up search of the premises. We have opportunities for sponsors to get great engagement on these shows. Call 770.799.6810 for more info. We'll be right back Break: CURIOSITY LAB BIKE RACE – DRAKE STORY 4: Crash in North Cobb Leaves Two Seriously Injured A serious traffic accident near Kell High School on Saturday morning resulted in significant injuries for two people. The collision, involving 32-year-old Ali Babar from Marietta on a Honda CB500 motorcycle and 90-year-old Marilyn Jensen from Woodstock in a Honda Civic, occurred just before 9:45 a.m. at the intersection of Canton Road and Farm Ridge Drive. According to Cobb Police spokesperson Officer Aaron Wilson, the crash happened when Jensen, attempting a left turn, crossed into Babar's path, causing the motorcycle to hit the curb and Babar to be thrown onto the road. Both Babar and Jensen were seriously injured and taken to Wellstar Kennestone Hospital. The investigation is ongoing, with police urging witnesses to contact Cobb Police at 770-499-3987 with any information. STORY 5: Wellstar Names New Kennestone President Lorrie Liang is the newly appointed president of Wellstar Kennestone Regional Medical Center and Wellstar Windy Hill Hospital, where she will also serve as senior vice president of Wellstar Health System. Bringing over 25 years of healthcare experience from her previous role at Sarasota Memorial Hospital in Florida, Liang managed a 900-bed facility, showcasing her proficiency in hospital operations and healthcare systems management. She holds a master's degree in health services administration. Liang takes over from Mary Chatman, aiming to lead Kennestone's executive team, enhance collaborations across Wellstar markets, and drive further successes by engaging with community and healthcare stakeholders. We'll be back in a moment Break: TEDS – INGLES 2 STORY 6: 'There is Hope': Mableton Councilwoman's Fight for MS Diagnosis Patricia Auch, serving on the Mableton City Council, encountered a life-changing challenge when diagnosed with multiple sclerosis, an autoimmune disease that compromises the protective covering of nerve fibers, leading to symptoms like vision loss in one eye. Navigating her diagnosis was fraught with difficulties, as skepticism from healthcare professionals delayed recognition and treatment, despite clear MRI findings. This reflects broader issues in healthcare, where studies indicate women, including those of color, often face dismissal of their pain, adversely affecting their care. Auch's determination led to her starting treatment with OCREVUS, thankfully covered by insurance, though it's notably costly. With her husband and community's support, Auch remains optimistic, ready to face her new reality with strength. STORY 7: Paving Project to Close Two Car Lots Near Chattahoochee River The Chattahoochee River National Recreation Area is in the process of a repaving project, temporarily closing the Columns Drive parking lot on Tuesday and the Powers Island lot on April 8. Meanwhile, the Interstate North lot has reopened. Though Columns Drive will be closed to vehicular traffic, it remains open for pedestrians and cyclists. This initiative aims to fix sub-surface issues, improve traffic flow and visibility, and update signage. The Akers Mill and Powers Island lots have been repaved as part of this project, which won't change the size or layout of the parking areas. Park officials are advising visitors to use alternative parking lots to reduce congestion and express gratitude for the public's patience during these enhancements. Break: ATL HEALTH FAIR Signoff- Thanks again for hanging out with us on today's Marietta Daily Journal podcast. If you enjoy these shows, we encourage you to check out our other offerings, like the Cherokee Tribune Ledger Podcast, the Gwinnett Daily Post, the Community Podcast for Rockdale Newton and Morgan Counties, or the Paulding County News Podcast. Read more about all our stories and get other great content at MDJonline.com. Did you know over 50% of Americans listen to podcasts weekly? Giving you important news about our community and telling great stories are what we do. Make sure you join us for our next episode and be sure to share this podcast on social media with your friends and family. Add us to your Alexa Flash Briefing or your Google Home Briefing and be sure to like, follow, and subscribe wherever you get your podcasts. 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We're all living longer and that includes people living with MS. And as they age, people with MS are asking new questions. Is there a need to stay on disease-modifying therapy after the age of 60? How do we know whether a new symptom is a symptom of MS or a symptom of aging? Does an additional age-related health condition make treating MS more difficult? Does treating MS make treating that new health condition more difficult? How can we best offset the social isolation that's often associated with MS and with aging? This week, Dr. Aaron Boster joins me on a deep dive into aging with MS. Dr. Boster brings 19 years of experience as an MS clinician. He's participated in over 65 clinical trials. And, following its FDA approval, Dr. Boster administered the very first dose of Ocrevus in the world. Dr. Boster is well known throughout the MS community for the countless number of short videos and live Q&A sessions he regularly hosts and posts on YouTube. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: Aging with MS :22 Dr. Aaron Boster tackles the multifaceted subject of aging with MS 1:59 Share this episode 38:09 Have you downloaded the free RealTalk MS app? 38:32 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/337 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 337 Guest: Dr. Aaron Boster Privacy Policy
In a paradigm-shifting discovery, researchers uncovered that B cells, not T cells, wield significant influence on orchestrating neurological damage in MS. Join UCSF Professor Dr. Stephen Hauser as he shares the remarkable odyssey from hurdles to triumphs of developing B cell monoclonal antibody treatment for multiple sclerosis. Disease impact, safety concerns and personalization of MS treatment of these medications including Ocrevus (ocrelizumab), Kesimpta (ofatumumab) and Briumvi (ublituximab) are highlighted. Brain-penetrant BTK inhibitor therapies that may offer more direct targeting of B cells within the central nervous system, potentially unlocking new possibilities in treating progressive forms of MS. Professor Heinz Wiendl explores the connection between Epstein-Barr virus infection of B cells and the initiation and progression of MS including trials investigating strategies to target EBV-infected B cells. Pioneering approaches like CAR-T therapy and brain shuttle techniques provide optimism for the next generation of MS treatment. Barry Singer MD, Director of The MS Center for Innovations in Care, interviews: Stephen Hauser MD, Professor of Neurology at the University of California, San Francisco (UCSF) and Director of the UCSF Weill Institute for Neurosciences Heinz Wiendl MD, Professor of Neurology and Chair of the Department of Neurology at the University Hospital of Muenster in Germany
Episode 613 This episode I talk about Multiple Sclerosis stuff: Cognition Testing, Retinal Test, Secondary Progressive Multiple Sclerosis SPMS, Delayed Ocrevus Risks. #MS #MultipleSclerosis #healthtalk #MonSter #brain #mswinter #cognitive #SPMS #Ocrevus #eyetest Send comments, questions and tips to kevintheduckpool@gmail.com please help us out by rating and reviewing us and telling a friend. Also check out audio and video versions of Crimson Cowl Comic Club & Under the Cowl podcasts. A fun variety of great people talk comic books, entertainment or whatever and you can see or hear me on many episodes of those podcasts as well with many more great episodes to come out in the future. --- Send in a voice message: https://podcasters.spotify.com/pod/show/kevin-kleinhans/message Support this podcast: https://podcasters.spotify.com/pod/show/kevin-kleinhans/support
In this heartfelt episode of 'The Just M.S. Show,' I, Justin Loizos, share my recent experience with a medical infusion. Despite the challenges, including a decision to use a walker and some physical setbacks, the day was marked by moments of positivity and resilience. I discuss the ups and downs, from the amazing support of my nurse to the difficulties my body faced, such as my back giving out. I also touch on the improvements I've noticed, including a better bladder pill and the comfort of snacks. This episode isn't just about the physical journey; it's a deeper dive into the mental fortitude required to keep hope alive in the face of multiple sclerosis, especially during the tough times over the past months and years. Join me as I reflect on the importance of support systems like the hope program and MS peer groups, and how they help in not giving up hope, even when walking and standing have become significant challenges.The Just MS (Multiple Sclerosis) Show, w host Justin Loizos, is a podcast that connects, educates and tries to uplift others living with multiple sclerosis. It provides real-life stories, interviews, and information about DMTs (disease modification therapies) and updates on research developments.www.justmultiplesclerosis.com
Welcome to Living Well with MS. In this episode, we are sharing the highlights from one of our ‘Ask Aaron' webinars, where neurologist, Dr Aaron Boster, answers questions about MS from the community. In this episode, Dr Boster covers a range of topics, including heat intolerance, when to start a DMT and his tips for self-managing MS. You can watch the original webinar here. Keep reading for the key episode takeaways. Topics and Timestamps: 02:13 Considerations for changing to a less stressful job and stronger DMTs. 05:09 Talking to clinicians about stress. 06:25 Hyperbaric oxygen therapy. 08:11 Stem cell transplants for PPMS. 10:35 Tysabri during pregnancy and breastfeeding. 12:23 MS and Stroke. 13:52 MRI showing brain cysts. 16:57 Betaferon and slow progression. 19:45 Changing from Tysabri to Ocrevus. 21:41 Vertigo. 23:05 Ampyra for walking, spasticity, and nerve pain. 25:50 Types of inflammation. 28:05 Anesthetic or epidural and MS. 30:15 B-cell depletion therapy and allergies. 31:17 Tips for self-managing MS. 37:42 Heat intolerance. 40:30 When to start on a DMT. 41:22 Ocrevus and low lymphocyte levels. 43:40 Diet and MS. 48:50 Nausea as an MS symptom. 51:30 CBD for MS. 52:45 Bursitis and MS. 53:36 Choosing a DMT and considering side effects. 55:16 Invisible illness in an ableist world. Selected Key Takeaways: Exercise as part of your daily lifestyle 34:42 “Exercising as part of a lifestyle means that if you do it, you're not rewarded. There's no reward for doing something as part of your lifestyle and if you don't do it, there's no punishment - you're not sent to the naughty corner. So, for example, I have a lifestyle of brushing my teeth. I don't tweet about it. I don't make YouTube videos about it. I don't even talk about it when I get to work. It's just something I do every morning and if I happen to forget to brush my teeth before I head off to the office, I'll run upstairs and do it. This is part of my lifestyle. So, I need people impacted by MS to exercise as part of their lifestyle.” Plan your day to minimise symptoms like heat intolerance 39:43 “We can conserve energy during those times when it's really hot out. Whereas I would normally encourage a patient to park at the back of the parking lot to get their steps in. If it's the middle of the day, [walking that far is] going to sap all your energy so that when you get to the grocery store you can't shop, that doesn't really work very well, does it? And so that's an example where we would have someone drop us off at the threshold of the grocery store so that you can be successful in your shopping.” Be brave in using mobility aids and seeking accommodations. 57:27 “I tell people who are embarrassed by their cane, ‘Don't you dare be embarrassed by your cane, a cane is a sign of intelligence.' A person with a cane would like to not fall. So, when a little boy is walking with [his] mum, and says, ‘Mummy, why is she using a cane?' That's an opportunity for the mother to say, ‘Well, she doesn't want to fall, she has a problem with her leg and the cane helps her.' It normalises it. So, one of the things that we need to do is to be brave. I'll remind you of the definition of bravery, ‘doing something despite being scared'. The second thing is, I want you to be very selfish. You need to be selfish; you live your life once. You're not living your life so some stranger, you don't know, thinks nice polite things about you.” Want to learn more about living a full and happy life with multiple sclerosis? Sign up to our newsletter to hear our latest tips. More info and links: Watch the original webinar here. Dr Boster was on three previous Living Well with MS episodes: S1E11: Making the Right Medication Choices S2E17: Lifestyle Choices and Their Impact on MS S3E43: Let's Talk About Sex (and MS) Check out Dr Boster's popular YouTube channel covering all aspects of MS. New to Overcoming MS? Visit our introductory page Connect with others following Overcoming MS on the Live Well Hub Visit the Overcoming MS website Follow us on social media: Facebook Instagram YouTube Pinterest Don't miss out: Subscribe to this podcast and never miss an episode. Listen to our archive of Living Well with MS episodes here. If you like Living Well with MS, please leave a 5-star review. Feel free to share your comments and suggestions for future guests and episode topics by emailing podcast@overcomingms.org. Make sure you sign up to our newsletter to hear our latest tips and news about living a full and happy life with MS. Support us: If you enjoy this podcast and want to support the ongoing work of Overcoming MS, we would really appreciate it if you could leave a donation here. Every donation, however small, helps us to share the podcast with more people on how to live well with MS.
Have you ever experienced Crap Gap? You may know it as the end of dosing interval or the weaning-off effect. This refers to the period of time between Ocrevus infusions when you might feel a worsening of MS symptoms. This may include things such as Fatigue, cognitive fog, motor function or balance problems. You know... all the things! Kellie Batts, who has had MS since 2016 shares her experience with Crap Gap as well as her experience over the last seven years with Relapsing-Remitting Multiple Sclerosis. Let's chat it up with Kellie! Instagram: @_livinglikek https://www.joinuplift.co/ UpLift accepts most insurances and copays start at $25. Instagram: @thrivingoversurvivingpodcast https://thrivingoversurvivingpodcast.com
Have you ever experienced Crap Gap? You may know it as the end of dosing interval or the weaning-off effect. This refers to the period of time between Ocrevus infusions when you might feel a worsening of MS symptoms. This may include things such as Fatigue, cognitive fog, motor function or balance problems. You know... all the things! Kellie Batts, who has had MS since 2016 shares her experience with Crap Gap as well as her experience over the last seven years with Relapsing-Remitting Multiple Sclerosis. Let's chat it up with Kellie! Instagram: @_livinglikek https://www.joinuplift.co/ UpLift accepts most insurances and copays start at $25. Instagram: @thrivingoversurvivingpodcast https://thrivingoversurvivingpodcast.com
This week, we're sharing more from the 2023 joint ECTRIMS (European Committee for Treatment and Research in Multiple Sclerosis) and ACTRIMS (Americas Committee for Treatment and Research in Multiple Sclerosis) annual meeting. What if we could identify MS before anyone experienced any of the typical clinical symptoms? Would treating that person with a high-efficacy disease-modifying therapy prevent the clinical symptoms of MS from even developing? Those are the questions that make the study of the MS prodrome so fascinating and important. At the joint ECTRIMS-ACTRIMS meeting, I met up with one of the foremost experts on the prodromal phase of MS, Dr. Helen Tremlett, who shared an update on what she's continuing to learn about the MS prodrome. We'll also tell you about Dr. Jeffrey Huang's work in developing an experimental drug that may stop MS progression and stimulate remyelination. We're sharing a report from Deloitte that analyzes the economic impact of the pandemic gap for people living with MS in Canada. We'll tell you about the results of a study that show lower-efficacy disease-modifying therapies can lead to faster disability accumulation. You'll hear about the work being done to deliver Ocrevus in a subcutaneous injection. And we'll tell you what happened that caused a study focused on stopping your DMT if your MS was stable to be called off. I had the good fortune of speaking with several research presenters at the joint ECTRIMS-ACTRIMS meeting, and I'll be releasing those bonus ECTRIMS Extra Conversations all week long. It's an opportunity for you to listen in to my conversations with some of the top MS research and clinical experts in the world. Be sure to look for these conversations throughout this week! We have a lot to talk about! Are you ready for RealTalk MS??! This Week: More from the largest MS research conference in the world :22 Don't miss ECTRIMS Extra Conversations all week long! Georgetown University researchers develop a drug that may stop MS progression and stimulate remyelination 1:20 The cost of the pandemic gap for people living with MS in Canada 3:10 Study shows that lower-efficacy DMTs can lead to faster disability accumulation 7:12 Clinical trial demonstrates that subcutaneous formulation of Ocrevus is safe and effective 10:47 Your MS stable, no relapses for at least 5 years. Can you stop your DMT? 12:33 Dr. Helen Tremlett explains how understanding the MS prodrome can change the future of MS treatment 15:49 Share this episode 21:26 Have you downloaded the free RealTalk MS app? 21:47 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/321 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com REPORT: The Socioeconomic Cost of, and Impact of, COVID-19 on Multiple Sclerosis in Canada https://mscanada.ca/sites/default/files/documents/2023-10/deloitte-covid-19-impact-english.pdf ECTRIMS PRESENTATION: Subcutaneous Ocrelizumab in Patients with Multiple Sclerosis: Results of the Phase 1b Dose-Finding OCARINA 1 Study https://s3.eu-central-1.amazonaws.com/m-anage.com.storage.congrex/abstracts_ectrims2023/148349.pdf ECTRIMS PRESENTATION: Discontinuation of First-Line Disease-Modifying Therapy in Stable MS (DOT-MS): An Early-Terminated Multicenter Randomized Controlled Trial https://s3.eu-central-1.amazonaws.com/m-anage.com.storage.congrex/abstracts_ectrims2023/146784.pdf Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 321 Guest: Dr. Helen Tremlett Privacy Policy
Good morning from Pharma and Biotech Daily, the podcast that gives you only what's important to hear in the Pharma and Biotech world. Here are the key points from today's news:GSK has partnered with Chongqing Zhifei Biological Products to expand sales of its shingles vaccine, Shingrix. The company aims to double sales of the vaccine by 2026.Apellis Pharmaceuticals reports steady demand for its new eye drug, Syfovre, despite safety concerns. Prescriptions for the drug have increased in August after a period of side effect investigations.Amgen has completed its $28 billion acquisition of Horizon, despite challenges from the FTC. The deal was delayed due to concerns about product "bundling," but Amgen agreed to requirements to address these concerns.Merck has released data showing a survival benefit for early treatment with its immunotherapy drug, Keytruda, in the perioperative setting. An approval decision is expected later this month.The medtech sector is facing several financial challenges, including declining stock prices, mergers and acquisitions, investment, and revenues, according to a report from consulting firm EY.Walgreens has announced that Tim Wentworth, a former executive at Cigna and Express Scripts, will become its new CEO starting from October 23.Novo Nordisk has ended a Phase III kidney outcomes study of its drug semaglutide early due to strong efficacy signals. The positive results suggest that semaglutide may have a beneficial impact on kidney function.Biotech bankruptcies have been on the rise in 2023, with a record high of 28 bankruptcies in the sector so far this year.Roche's subcutaneous version of its multiple sclerosis drug Ocrevus has shown promise in a Phase III trial. The subcutaneous formulation performed comparably to the intravenous version of the drug.Biotech company Sana has announced staff layoffs and a refocus on its ex vivo cell therapy platform. The company will be reducing its workforce by 29% and reallocating resources to prioritize its hypoimmune platform.These developments highlight both positive and challenging trends in the Pharma and Biotech industry. Stay tuned for more updates on the latest news.
Welcome to Living Well with MS. In this episode, we are delighted to welcome neurologist, Professor Stephen L. Hauser as our guest. Professor Hauser has been researching MS since the 1970s, and his team's research led to the development of the disease-modifying therapy ‘Ocrevus'. He talks to Geoff about the future of DMTs for MS, what autoimmunity is, and how he and his team developed one of the most world-renowned MS DMTs. Questions and Timestamps 01:45 Can you introduce yourself and tell us about your work? 04:23 What is autoimmunity and how does it relate to MS and inflammation? 06:37 Are some people more prone to develop autoimmune conditions? 10:11 How can a person get the most out of the time they have with their neurologist? 14:01 The benefits of participating in a clinical trial. 16:01 How is MS similar or different from other brain conditions? 20:11 Is there a role of infection in brain diseases like MS? 23:10 The role of hygiene in autoimmunity. 25:40 Book excerpt and how Ocrevus was developed. 32:53 What's next in B-cell research and MS? 37:58 What tips do you have for lifestyle modifications for people who have MS? More info and links: Read more about Professor Hauser from the American Brain Foundation Read The Face Laughs While the Brain Cries: The Education of a Doctor Read the key episode takeaways and Professor Hauser's bio New to Overcoming MS? Visit our introductory page Connect with others following Overcoming MS on the Live Well Hub Visit the Overcoming MS website Follow us on social media: Facebook Instagram YouTube Pinterest Don't miss out: Subscribe to this podcast and never miss an episode. Listen to our archive of Living Well with MS episode here. If you like Living Well with MS, please leave a 5-star review. Feel free to share your comments and suggestions for future guests and episode topics by emailing podcast@overcomingms.org. Make sure you sign up to our newsletter to hear our latest tips and news about living a full and happy life with MS. If you enjoy this podcast and want to support the ongoing work of Overcoming MS, you can leave a donation.
Experiencing difficulty walking is one of the most common mobility challenges faced by people living with MS. The good news is that there are things you can do -- both with a physical therapist and by yourself, at home -- that can make a real difference. Joining me to discuss improving your gait, avoiding falls, and what experts are learning from the latest research in this area is the Director of Research for the Department of Health Care Sciences at Wayne State University School of Medicine, Dr. Nora Fritz. We're also sharing the results of a study that looked at whether disease-modifying therapies had an impact on the number of hospitalizations or visits to the doctor someone with MS might experience over a 22-year period. We'll tell you about a study that measured the outcome for people with relapsing-remitting MS who were treated with autologous hematopoietic stem cell transplantation (aHSCT) compared with the outcome for people with relapsing-remitting MS who were treated with Gilenya, Tysabri, or Ocrevus. We'll share the results from a study that analyzed 56 other studies to determine the prevalence of sexual dysfunction among women living with MS. We'll tell you about a nationwide study that's about to get underway that will try to answer the question, 'Should people with MS over the age of 65 discontinue their disease-modifying therapy?' And we'll remind you about how you can join us in Napa Valley this Saturday, July 29th, for Crush MS. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: Improving your balance and gait :22 A research team analyzed the risk of hospitalization over a 22-year period for people with MS who were on a disease-modifying therapy and compared those results to people with MS who weren't on a DMT 1:21 Researchers compared patient outcomes associated with autologous hematopoietic stem cell transplantation (aHSCT) and compared them with outcomes associated with Gilenya, Tysabri, and Ocrevus 4:40 A research team in Iran analyzed results from 56 separate studies about sexual dysfunction in women with MS 8:29 Should someone over the age of 65 discontinue their disease-modifying therapy? 11:40 Dr. Nora Fritz discusses gait, balance, fall prevention and more 15:20 Share this episode 33:49 I'll be at Crush MS! Will I see you there? 34:09 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/308 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com STUDY: Disease-Modifying Drugs for Multiple Sclerosis and Subsequent Health Service Use https://pubmed.ncbi.nlm.nih.gov/34949130 Tremlett's MS Research Explained: Disease-Modifying Drugs for Multiple Sclerosis and Subsequent Health Service Use https://tremlettsmsresearchexplained.wordpress.com/category/ms-disease-modifying-drug-research STUDY: Comparative Effectiveness of Autologous Hematopoietic Stem Cell Transplant vs Fingolimod, Natalizumab, and Ocrelizumab in Highly Active Relapsing-Remitting Multiple Sclerosis https://pubmed.ncbi.nlm.nih.gov/37437240 STUDY: Prevalence and Risk of Developing Sexual Dysfunction in Women with Multiple Sclerosis (MS): A Systematic Review and Meta-Analysis https://bmcwomenshealth.biomedcentral.com/articles/10.1186/s12905-023-02501-1 RealTalk MS Episode 255: Aging With MS with Dr. John Corboy https://realtalkms.com/255 Crush MS https://crushms.org If you're living with MS, email info@crushms.org for special deep discount code Crush MS 10% Discount Code for everyone is Realtalkmsdiscount (case sensitive) Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 308 Guest: Dr. Nora Fritz Privacy Policy
Learning to effectively manage stress and anxiety is important for everyone. And if you're living with the unpredictability of MS, it may be doubly important. Joining me to discuss the impact that stress and anxiety can have on your physical and mental health, along with strategies you can use to manage the stress and anxiety in your life, is Dr. Bree Wannamaker. Dr. Wannamaker lives with MS, and she's a Licensed Professional Counselor and Chief Therapist & Consultant in her practice, Just Us Counseling and Consulting, LLC. We're also sharing the results of a study that compared patient outcomes among people with relapsing-remitting MS who were started on a high-efficacy disease-modifying therapy and people with relapsing-remitting MS who were started on a lower efficacy DMT. We'll tell you about remyelination research that led to a surprising conclusion. We'll share the details about Crush MS, an amazing event in Napa Valley that brings together wine, food, and music to raise money for MS research. I hope I'll see you there! And if you're on Ocrevus, we have some potentially time-saving news to share with you! We have a lot to talk about! Are you ready for RealTalk MS??! This Week: Managing stress and anxiety if you're living with MS :22 A research team analyzed the outcomes for people with MS who were started on a high-efficacy DMT and compared them to the outcomes for people with MS who were started on a lower-efficacy DMT 1:18 An experimental therapy promoted remyelination by upending the commonly held scientific hypothesis about myelin repair 6:53 I'll be at Crush MS! Will I see you there? 9:53 An Ocrevus treatment in just 10 minutes? 11:31 Dr. Bree Wannamaker shares strategies for managing stress and anxiety 13:33 Share this episode 33:20 Have you downloaded the free RealTalk MS app??? 33:41 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/307 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com STUDY: Does Initial High-Efficacy Therapy in Multiple Sclerosis Surpass Escalation Treatment Strategy? A Comparison of Patients with Relapsing-Remitting Multiple Sclerosis in the Czech and Swedish National Multiple Sclerosis Registries https://sciencedirect.com/science/article/abs/pii/S221103482300305X TREAT-MS Clinical Trial https://treat-mstrial.org Crush MS https://crushms.org If you're living with MS, email info@crushms.org for special deep discount code Crush MS 10% Discount Code for everyone is Realtalkmsdiscount (case sensitive) Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 307 Guest: Dr. Bree Wannamaker Privacy Policy
In this episode, Justin Loizos unveils a unique part of his journey with MS - delivering a speech at Roche Canada, the world's largest biotech company, on World MS Day. He shares the inspiration, insights, and experiences that emerged from this special occasion, not forgetting the beautiful facility and the warm, professional team that made the day even more remarkable. Show Notes: • Justin's speech at Roche Canada and the significance of World MS Day. • Roche's impactful role in Justin's journey with MS, specifically with their revolutionary medication, Ocrevus. • The decision to use a walker on the day of the speech and the challenges, as well as the authenticity it added to his message. • A look into the beautiful Roche facility, the warm reception, and the pleasure of meeting his team in person for the first time. • Reflections on the impact of the experience on Justin's advocacy work and his connection to the MS community. • Closing remarks and a heartfelt thank you to listeners for their continued support. Remember to subscribe and share our podcast. Together, we can make a difference in the lives of those with MS.The Just MS (Multiple Sclerosis) Show, w host Justin Loizos, is a podcast that connects, educates and tries to uplift others living with multiple sclerosis. It provides real-life stories, interviews, and information about DMTs (disease modification therapies) and updates on research developments.www.justmultiplesclerosis.com
In this episode of The Just M.S. Show, host Justin Loizos brings you a roundup of the previous week's news and research in the world of multiple sclerosis. From the impact of diet and physical activity on MS symptoms to the latest developments in treatment options, this episode is packed with valuable insights. Justin also discusses the importance of community support and awareness, especially as we approach MS Day. Tune in to stay informed and empowered in your MS journey. Links: https://www.neurologylive.com/view/research-identifies-links-between-pro-inflammatory-diets-increased-relapses-lesion-multiple-sclerosishttps://www.neurologylive.com/view/researchers-identify-association-between-physical-activity-spinal-cord-gray-matter-area-multiple-sclerosishttps://adventist.news/news/multiple-sclerosis-research-clinic-launches-at-sydney-adventist-hospitalhttps://medicalxpress.com/news/2023-05-life-stressors-contribute-multiple-sclerosis.htmlhttps://www.pharmacytimes.com/view/study-ofatumumab-slows-worsening-disability-in-patients-with-relapsing-multiple-sclerosishttps://www.news-medical.net/news/20230526/Tracking-changes-in-blood-vessels-may-hold-clues-to-early-detection-of-neurodegenerative-diseases.aspxhttps://www.eurekalert.org/news-releases/990659The Just MS (Multiple Sclerosis) Show, w host Justin Loizos, is a podcast that connects, educates and tries to uplift others living with multiple sclerosis. It provides real-life stories, interviews, and information about DMTs (disease modification therapies) and updates on research developments.www.justmultiplesclerosis.com
MedLink Neurology Podcast is delighted to feature selected episodes from BrainWaves, courtesy of James E Siegler MD, its originator and host. BrainWaves is an academic audio podcast whose mission is to educate medical providers through clinical cases and topical reviews in neurology, medicine, and the humanities, and episodes originally aired from 2016 to 2021. Originally released: July 11, 2019 In this week's Teaching through Clinical Cases, Dr. Olga Rosenveld Thon (Drexel) walks us through the challenging management decisions that emerge in the care of women with demyelinating disease. Why are women prone to multiple sclerosis? How do pregnancy, breastfeeding, and menopause influence the disease course--and should these events alter the course of their therapy? Produced by James E Siegler and Olga Thon. Music courtesy of Cellophane Sam, Chris Zabriskie, Jon Watts, Kai Engel, and Lee Rosevere. Sound effects by Mike Koenig and Daniel Simion. BrainWaves' podcasts and online content are intended for medical education only and should not be used for clinical decision-making. Be sure to follow us on Twitter @brainwavesaudio for the latest updates to the podcast. DISCLOSURESDr. Rosenveld Thon reports relevant financial interests in Ocrevus, as a consultant. REFERENCESBove R, Chitnis T, Houtchens M. Menopause in multiple sclerosis: therapeutic considerations. J Neurol 2014;261(7):1257-68. PMID 24101131 Bove R, Chitnis T. The role of gender and sex hormones in determining the onset and outcome of multiple sclerosis. Mult Scler 2014;20(5):520-6. PMID 24561324 Bove R. Women's issues in multiple sclerosis. Semin Neurol 2016;36(2):154-62. PMID 27116722 Confavreux C, Hutchinson M, Hours MM, Cortinovis-Tourniaire P, Moreau T. Rate of pregnancy-related relapse in multiple sclerosis. Pregnancy in Multiple Sclerosis Group. N Engl J Med 1998;339(5):285-91. PMID 9682040 Correale J, Farez MF, Ysrraelit MC. Increase in multiple sclerosis activity after assisted reproduction technology. Ann Neurol 2012;72(5):682-94. PMID 23034952 Michel L, Foucher Y, Vukusic S, et al. Increased risk of multiple sclerosis relapse after in vitro fertilisation. J Neurol Neurosurg Psychiatry 2012;83(8):796-802. PMID 22693287 Nielsen NM, Westergaard T, Rostgaard K, et al. Familial risk of multiple sclerosis: a nationwide cohort study. Am J Epidemiol 2005;162(8):774-8. PMID 16120694 Ramagopalan SV, Dobson R, Meier UC, Giovannoni G. Multiple sclerosis: risk factors, prodromes, and potential causal pathways. Lancet Neurol 2010;9(7):727-39. PMID 20610348 Rankin K, Bove R. Caring for women with multiple sclerosis across the lifespan. Curr Neurol Neurosci Rep 2018;18(7):36. PMID 29789964 We believe that the principles expressed or implied in the podcast remain valid, but certain details may be superseded by evolving knowledge since the episode's original release date.
I'm super excited about these next two episodes! Of course, any episode that has to do with HSCT (hematopoietic stem cell transplant) is super important to me. For the last 10 years, I've been a vocal advocate for HSCT. Screaming about it from the top of my lungs through social media, blogging, and to anyone who would listen or inquired. As you may or may not know, my co-host, Jodi, and I have both received HSCT for our MS. I had mine in Russia 10 years ago, and Jodi in Mexico in 2018. So when Dr. Richard Burt's team reached out to us to discuss all things HSCT, as well as his recently released book, Everyday Miracles, that puts forth, in lay terms, his long road to accomplishing his goals, we were beyond open to having the opportunity to ask all the questions we ever wanted to know. Those questions include the reasoning behind his choices for inclusion and exclusion of certain patients for this treatment...in particular, MS patients. Questions like…Which MS patients does this treatment work for? Who doesn't it work for? and why? So who is Dr Richard Burt? He's the determined and innovative physician who pioneered the use of HSCT in the US. Within the HSCT community, he's considered the Godfather of HSCT, and yes, in case you're wondering, he IS the Dr. who treated actress Selma Blair. For the last 35 years, with laser focus and blinders on to block out any peripheral static from naysayers, Dr. Burt has been quietly and methodically raging against the machine that is today's medical system. Armed with the knowledge he gained while treating patients with leukemia with HSCT, he felt certain it could potentially halt the progression of certain autoimmune diseases and in many cases, reverse symptoms. So he plowed forward with a mission to prove his hypothesis. But it wouldn't happen overnight. There were randomized trials, hundreds of patients, many diseases and, in the end, life-changing success stories. Dr. Burt was the first doctor in the US to give hope to patients with MS, Lupus, Crohn's, Stiff Person Syndrome and CIDP, when in the past they'd grappled with a life filled with a long list of ineffective drugs and certain disease progression. To be clear, just because he was butting up against systemic red tape here in the US, doesn't mean he wasn't becoming a highly decorated peer by the international medical community and beyond. His list of awards granted by esteemed medical organizations is lengthy and impressive. I mean seriously, how many doctors do you know who've been presented with the "keys to the Vatican" in Vatican City, Rome? He was even recognized by Science illustrated for accomplishing one of the top 10 medical breakthroughs for the next 10 years. And, the forward for his book was written by the Dalai Lama! Yes! Dr. Burt has got the juice! So much so that we had to squeeze it out in two full episodes. Both of which are packed with answers from pointed questions that you won't find anywhere else. Asked by HSCT veterans who, for over a decade, have been privy to all the insider speculation regarding Dr. Burt's methodology. Like why he will or won't treat certain MS patients, why he uses certain drugs in his protocol, and what he considers a successful HSCT. It's time to dig in and peel back the curtain on HSCT with Dr. Richard Burt. EPISODE NOTES: - Dr. Burt's book, Everyday Miracles - Making HSCT easy to understand - 54 patient stories - Being a patient-oriented physician - Insurance coverage - How HSCT works - The mistake of thinking that the stem cells are what resets your immune system - Whose stem cells are used? - Myeloablative or non-myeloablative HSCT…which one does Dr. Burt prefer for AI disease - HSCT for cancer vs. an autoimmune disease - Stronger protocols don't always mean better - A one-time treatment - How long will it last? - The important role of measuring brain atrophy in MS progression - The colonialistic attitude of doctors toward patients - The risks associated with a myeloablative protocol - What is the definition of a successful HSCT - The difference between active and non-active SPMS - Neurodegeneration…it's tricky - Ocrevus, neurodegeneration and progression to SPMS - Your immune system is your ally - MS drugs are toxins - Why he used ATG as part of his HSCT protocol LINKS: This episode on YouTube: https://youtu.be/ezjhqHtYA8Y Dr. Burt's book, EVERYDAY MIRACLES: https://www.amazon.com/Everyday-Miracles-Scleroderma-Autoimmune-Hematopoietic/dp/1637631251 Dr. Burt's website: https://astemcelljourney.com/about/drrichardburt/ Email to apply for HSCT with Dr. Burt: BURTRRMSTrial@scrippshealth.org THE MS GYM: Website YouTube Facebook Instagram BROOKE SLICK: Instagram
Welcome to Living Well with MS. In this episode, Geoff meets with Kathy Chester, a certified fitness trainer and podcaster with MS. Keep reading for the key episode takeaways and Kathy's bio. Make sure you sign up to our newsletter to hear our latest tips and news about living a full and happy life with MS. And if you're new to Overcoming MS, visit our introductory page to find out more about how we support people with MS. Bio: Kathy Chester hosts the Move it or Lose it Podcast and leads Women Who Disrupt MS, a support group facilitated through the Multiple Sclerosis Foundation (MSF). She is the owner and lead trainer of Disrupt Fitness Gym. Fitness has always played a big role in her life. She became an aerobics and boot camp coach and went on to manage various studios. In 2015, she established Disrupt Fitness Gym: a program combining circuit and interval training to create the most efficient workout. Kathy was diagnosed with Multiple Sclerosis more than 20 years ago. Her MS symptoms began with numb hands and feet, migraines, and cognitive issues. The DMT's and MS treatments she has tried include Avonex, steroids, chemotherapy, Tysabri, and now, Ocrevus. Taking these medications further confirmed her belief that movement and exercise is crucial for optimal health, strength, and mobility. Her expertise has allowed her to train people with MS all over the world. She developed a new program called DMAT (Disrupt Move and Transform). DMAT targets joints and muscles to slow down advancement of the disease. The program is based on a one-on-one or group session. Both standing and seated moves are demonstrated and trained in real-time. The results are increased strength and confidence in everyday movements which leads to more independence, and therefore, a better quality of life. Selected Key Takeaways Understanding exercise to improve MS symptoms As the MS changed, and as I grew in my knowledge and more certifications, then I was able to understand what moves needed to be done to strengthen our bodies, our legs, the foot drop, keeping the MS hug away, and things like that. So I started working with the MS and the autoimmune world. The benefits of live exercise classes – giving feedback I also do it [exercise classes] via Zoom, where there could be seven to 10 people, and I'm showing seated moves and standing moves. I'm able to watch and say 'Hold on. Stop that. Let's do this instead.' So I can watch [and] ask, 'Is it cool enough where you are? Do you have water?' And I think that's a personal touch that I'm able to give. Producing a podcast I wanted to do a podcast for a long time. The gym just took so much of me. I listened to several different podcasts for years and tried to get my [own] idea of what I wanted it to be. I decided I wanted to have guests on with autoimmune diseases, a lot of them have MS. And then to get something that is inspirational, something that they do, and then have a doctor come on and really talk about the issue. Related Links: Try an Overcoming MS exercise video Find out more about Kathy's Disrupt Move and Transform exercise program Listen to Kathy's podcast Move It or Lose It Don't miss out: Subscribe to this podcast and never miss an episode. You can catch any episode of Living Well with MS here or on your favourite podcast listening app. If you like Living Well with MS, please leave a 5-star review on Apple Podcasts or wherever you tune into the show. Feel free to share your comments and suggestions for future guests and episode topics by emailing podcast@overcomingms.org. Make sure you sign up to our newsletter to hear our latest tips and news about living a full and happy life with MS. If you enjoy this podcast and want to support the ongoing work of Overcoming MS, you can leave a donation here.
Multiple Sclerosis News Today's multimedia associate, Price Wooldridge, reads about a study that shows how new myelin production may be less efficient in late-onset multiple sclerosis patients, which could underlie more severe disease progression. He also reads “MS News That Caught My Eye Last Week: ECTRIMS, Ocrevus, Kesimpta, Epstein-Barr, DMTs” by Ed Tobias, from his column “The MS Wire”. =================================== Are you interested in learning more about multiple sclerosis? If so, please visit: https://multiplesclerosisnewstoday.com/ ===================================== To join in on conversations regarding multiple sclerosis, please visit: https://multiplesclerosisnewstoday.com/forums/
When we talk about managing MS on this podcast, we're usually talking about treatments based upon traditional Western medicine. But there are also complementary therapies that have been shown to improve MS symptoms. And acupuncture is one of those complementary therapies that's been shown to be effective in treating pain, spasticity, numbness or tingling, bladder problems, and depression. Joining me to talk about the therapeutic effects of acupuncture in treating MS symptoms are Jennifer Mohr-Boscaino and Ken Bandler. Jennifer is a licensed acupuncturist and the founder of Precious Health Acupuncture in New York, and Ken is a public relations executive who lives with MS and receives acupuncture treatment for his MS symptoms. We're also talking about how a large MS clinical trial has been able to increase minority participation, and how other MS research studies may be able to learn from this example. We'll tell you about a study that showed the benefit of COVID-19 mRNA vaccinations and boosters for people living with MS who are on b-cell depleting therapies, like Ocrevus. And if you're an MS caregiver, or you know one, I'm asking for a favor that will cost you just 5 minutes of your time. We have a lot to talk about! Are you ready for RealTalk MS??! Next Week: RealTalk MS recorded LIVE at this week's National MS Society 2022 Leadership Conference :22 Today: It's Election Day in the U.S. Please vote! :41 Your Question Answered: How Big is the ECTRIMS Congress? 1:30 This Week: Acupuncture and MS 3:01 Pragmatic trials may increase minority participation in MS research 4:03 Research supports COVID-19 mRNA vaccination and booster for people with MS on Ocrevus 7:10 If you're an MS caregiver, or you know one, please help me out 10:26 Jennifer Mohr-Boscaino and Ken Bandler discuss the benefits of acupuncture for managing some MS symptoms 14:04 Share this episode 29:02 Download the RealTalk MS app for your iOS or Android device 29:22 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/271 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Take the iConquer MS Caregiver Survey https://realtalkms.com/caregiver National MS Society: Your Right to Vote and Polling Place Accessibility https://nationalmssociety.org/Get-Involved/Advocate-for-Change/Take-Action/Voter-Info DELIVER-MS Study https://deliver-ms.com Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 271 Guest: Steffany Stern and Judy Wilson Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy
Multiple Sclerosis News Today's multimedia associate, Price Wooldridge, reads a news article on how fertility treatments do not appear to significantly increase the risk of relapse in women with multiple sclerosis. He also reads a news article on how treatment with Ocrevus before or during pregnancy does not seem to increase the risk of major pregnancy or infant complications. =================================== Are you interested in learning more about multiple sclerosis? If so, please visit: https://multiplesclerosisnewstoday.com/ ===================================== To join in on conversations regarding multiple sclerosis, please visit: https://multiplesclerosisnewstoday.com/forums/
Multiple Sclerosis News Today's multimedia associate, Price Wooldridge, reads a news article about a study showing that when MS patients stop their disease-modifying treatment, the risk of relapses and disease activity on MRI scans is higher among patients who have RRMS. He also reads an article on how Ocrevus safely and effectively reduced disease activity in people with early-stage relapsing-remitting multiple sclerosis. =================================== Are you interested in learning more about multiple sclerosis? If so, please visit: https://multiplesclerosisnewstoday.com/ ===================================== To join in on conversations regarding multiple sclerosis, please visit: https://multiplesclerosisnewstoday.com/forums/
Multiple Sclerosis News Today's multimedia associate, Price Wooldridge, reads a news article reporting that an interval dosing of Ocrevus of one month or longer was linked to a fivefold higher risk of MRI-based disease activity. He also reads “Researchers Hit a Bump on the BTK Inhibitor Road” by Ed Tobias, from his column "The MS Wire". =================================== Are you interested in learning more about multiple sclerosis? If so, please visit: https://multiplesclerosisnewstoday.com/ ===================================== To join in on conversations regarding multiple sclerosis, please visit: https://multiplesclerosisnewstoday.com/forums/
Multiple Sclerosis News Today's multimedia associate, Price Wooldridge, discusses how two years of Ocrevus treatment outperformed Rebif at preventing myelin loss in people with relapsing forms of multiple sclerosis. He also reads “Dreams, Diagnoses, and Disclosures: When to Tell Others About MS” by Ed Tobias, from his column “The MS Wire”. =================================== Are you interested in learning more about multiple sclerosis? If so, please visit: https://multiplesclerosisnewstoday.com/ ===================================== To join in on conversations regarding multiple sclerosis, please visit: https://multiplesclerosisnewstoday.com/forums/
Multiple Sclerosis News Today's multimedia associate, Price Wooldridge reads an article about how fully vaccinated MS patients who are taking Ocrevus or Gilenya have a higher risk of COVID-19 infection than those on other therapies. He also reads “While Living With MS, Good Planning Is Key to Avoiding Chaos”, a column from Beth Ullah's “ Through the Looking Glass.” =================================== Are you interested in learning more about multiple sclerosis? If so, please visit: https://multiplesclerosisnewstoday.com/ ===================================== To join in on conversations regarding multiple sclerosis, please visit: https://multiplesclerosisnewstoday.com/forums/
These days it seems most are getting Ocrevus infusions twice a year. It is one of the most common MS infusion drugs on the market. Tara & Bobie have both been on this drug for years. What do they do to prepare? What do they bring with to pass the time? What's a 4-6hr appointment look like? What are their side effects day of and up to a week after? Let's find out all the details!! --- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
Multiple Sclerosis News Today's multimedia associate, Price Wooldridge, reads a news article about how 75% of SPMS and PPMS patients in the CONSONANCE trial showed no evidence of disease progression after a year of Ocrevus treatment. He also reads “Old Friends, Broken Chairs, UTI Admissions, and Redemption”, a column by John Connor. =================================== Are you interested in learning more about multiple sclerosis? If so, please visit: https://multiplesclerosisnewstoday.com/ ===================================== To join in on conversations regarding multiple sclerosis, please visit: https://multiplesclerosisnewstoday.com/forums/
Episode 385 Comic Book talk about Ash vs the Army of Darkness #1, DC vs Vampires #6, the Lethal Foes of Spider-Man #2, Married With Children flashback special #2, Married with Children Quantum Quartet #2, Spawn #328, Vincent Price Nightwatch. Multiple Sclerosis Health Talk about Ocrevus, MS Relapse, Low Impact Cardio Exercises, Protein Sources for Vegetarians and Vegans, Yoga Poses and other stuff with health and MS. Send comments, questions and tips to kevintheduckpool@gmail.com please help us out by rating and reviewing us and telling a friend. Also check out audio and video versions of Crimson Cowl Comic Club & Under the Cowl podcasts. A fun variety of great people talk comic books, entertainment or whatever and you can see or hear me on many episodes of those podcasts as well with many more great episodes to come out in the future. --- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app --- Send in a voice message: https://anchor.fm/kevin-kleinhans/message Support this podcast: https://anchor.fm/kevin-kleinhans/support
Multiple Sclerosis News Today's multimedia associate, Price Wooldridge, discusses how a study found no increased risks for women with MS or their babies after exposure to Ocrevus before or during pregnancy. He also reads an article about how autologous hematopoietic stem cell transplant, despite risks, may be a viable treatment option for some MS patients. =================================== Are you interested in learning more about multiple sclerosis? If so, please visit: https://multiplesclerosisnewstoday.com/ ===================================== To join in on conversations regarding multiple sclerosis, please visit: https://multiplesclerosisnewstoday.com/forums/
Multiple Sclerosis News Today's multimedia associate, Price Wooldridge, reads an article about how one year of Ocrevus (ocrelizumab) treatment does not increase the risk of a rare brain infection known as PML in people with MS, a study suggests. Plus, Price reads the column by John Connor, Fall Down, Get Up Again, “On the Healing Powers of THC”. =================================== Are you interested in learning more about multiple sclerosis? If so, please visit: https://multiplesclerosisnewstoday.com/ ===================================== To join in on conversations regarding multiple sclerosis, please visit: https://multiplesclerosisnewstoday.com/forums/
Happy Tuesday everyone! Sorry for the absence last week, but yay! We're back with another interview! And today I'm chatting to Anu Dravid about her diagnosis of multiple sclerosis (MS) back when she was just 17 years old. In this episode Anu talks us through her diagnosis, she discusses the various different MS treatments she has been on - including flying to the USA to receive Ocrevus infusions before it was funded here in NZ - what MS looks like on the day to day for her, and how being diagnosed has inspired her passion for studying physiology and pharmacology. For more information about MS Auckland head to: msakl.org.nz If aHSCT is something you are considering for your MS, or you're interested in learning more, check out Rachel's interview episode (just a couple of scrolls back!) ** This episode is dedicated to the lovely Ingrid. ** Ingrid was the general manager of MS Auckland, was one of my biggest cheerleaders, and is who connected Anu and I together originally. She was really excited to hear Anu on the podcast and sadly passed away a week before this episode was released. I know she would've loved this interview, and I hope you do too. As always feel free to reach out on instagram, I'm @thatssochronic. I love hearing from you all and seeing where you're listening to the podcast, so keep the shares coming! @thatssochronic | @jessssbrien | #thatssochronic Want to chat even more? SEND IN A VOICE NOTE! Send me a message on the That's So Chronic hotline. Just head to jessbrien.com/hotline Want to share your story on That's So Chronic? Here's the application form: https://forms.gle/csebLkwfwAjiLApK9 Or have an idea for an upcoming That's So: episode? Let me know here: https://forms.gle/4RZbCiHARjV5gmcWA Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others. Hosted on Acast. See acast.com/privacy for more information.
Multiple Sclerosis News Today's columnist, Jenn Powell, discusses how an AI-powered robotic glove may help improve hand grip strength in those with MS. Multiple Sclerosis News Today's multimedia associate, Price Wooldridge, reads the column by Ed Tobias, MS Wire, “Ocrevus and PML: Should We Be Worried?” ===================================== Treatment for Relapsing MS Progression | MAYZENT® (siponimod) Read about MAYZENT, a once daily pill that can significantly slow down disability progression in people with relapsing MS. See full prescribing & safety info. https://www.mayzent.com/?utm_source=changeinrms&utm_medium=vanityurl&utm_campaign=novartis_mayzent_2020&utm_content=soundcloud ===================================== Are you interested in learning more about multiple sclerosis? If so, please visit: https://multiplesclerosisnewstoday.com/ ===================================== To join in on conversations regarding multiple sclerosis, please visit: https://multiplesclerosisnewstoday.com/forums/
Multiple Sclerosis News Today's columnist, Jenn Powell, discusses the FDA approval of a shorter infusion time for the MS therapy Ocrevus. Plus, Multiple Sclerosis News Today's multimedia associate, Price Wooldridge, reads Jessie Ace's column, DISabled to ENabled, on the things people say when you tell them about your multiple sclerosis diagnosis. ===================================== Treatment for Relapsing MS Progression | MAYZENT® (siponimod) Read about MAYZENT, a once daily pill that can significantly slow down disability progression in people with relapsing MS. See full prescribing & safety info. https://www.mayzent.com/?utm_source=changeinrms&utm_medium=vanityurl&utm_campaign=novartis_mayzent_2020&utm_content=soundcloud ===================================== Are you interested in learning more about multiple sclerosis? If so, please visit: https://multiplesclerosisnewstoday.com/ ===================================== To join in on conversations regarding multiple sclerosis, please visit: https://multiplesclerosisnewstoday.com/forums/
This is the 2nd part to this interview. Holly is a young person with Primary Progressive MS. Her diagnosis story is one of frustration. She was aged 24 at her eventual diagnosis but she had to go to her Doctor 3 times and kept being told ‘there's nothing wrong with you'. Prof. Giovannoni from St. Barts in London is her consultant for Disease Modifying Drugs - Ocrevus. She has only had 2 x half infusions and has seen some slight improvement in walking and bowel function. The future looks positive and Holly has started looking after herself and putting herself first for the first time in her life. Copyright: Bron Webster 2020 More episodes available at: https://themsshow.libsyn.com/
Holly is a young person with Primary Progressive MS. Her diagnosis story is one of frustration. She was aged 24 at her eventual diagnosis but she had to go to her Doctor 3 times and kept being told ‘there's nothing wrong with you'. Using some great advice from her Personal Trainer, Holly was eventually sent by her Doctor to hospital. Several MRI scans later, one using contrast dye, the diagnosis became clearer. “If it was a female consultant it might have been a bit different” We talk about Holly learning how to self-catheterise and also clear out her bowels - because with Multiple Sclerosis these things are common, but not easily spoken about. “I look at the smaller picture … I look at each day rather than getting through a month” “If I went to part-time, that's me letting the MS win” Initially, she was diagnosed with demyelination and was told that because of the ‘single' event it could not be classed as ‘multiple sclerosis'. This changed after further scans. The MS Society asked Holly to help in the Parliamentary campaign to gain approval for Ocrevus (the only Disease Modifying drug presently available for Primary Progressive MS. Copyright Bron Webster 2020
Important Listening Nothing in this, or any other episode, constitutes medical advice, Also, a quick summary of the latest Covid advice for people with MS Copyright: Bron Webster 2020
Multiple Sclerosis News Today columnist, Jenn Powell discusses accepted applications for shortened infusion time of Ocrevus in both US and Europe. Are you interested in learning more about Multiple Sclerosis? If so, please visit https://multiplesclerosisnewstoday.com/
This week, and for the foreseeable future, we're committed to sharing the most updated and reliable information on COVID-19 and MS. Joining me as my guest is Dr. Marwa Kaisey, an Assistant Professor of Neurology specializing in Multiple Sclerosis and Neuroimmunology at Cedars-Sinai in Los Angeles. We're talking with Dr. Kaisey about the things that people need to know about Ocrevus, Tecfidera, Gilenya, and other specific MS disease-modifying therapies in light of COVID-19. Dr. Kaisey will also share information about the status of people living with MS who have already been diagnosed with COVID-19. And we'll even hear about some MS disease-modifying therapies that are being tested as potential treatments for COVID-19. We'll connect you to the video replay of last Friday's Ask An MS Expert webinar. I hope you already consider these weekly webinars with leading MS experts answering your questions to be "can't miss" viewing. We're also talking about the federal government's decision not to re-open enrollment for health insurance under the Affordable Care Act for 39 states, and we'll tell you which 11 states have re-opened enrollment during the pandemic. And we'll share the federal government's guidance, reminding states, healthcare providers, and healthcare facilities that it's a violation of federal law to withhold medical treatment due to disability. (We're also sharing a link to that document that you can download and keep with you on your phone!) We'll review the specific provisions in the Coronavirus Aid, Relief, and Economic Security Act that MS Activists advocated for. And we'll talk about how COVID-19 is already delaying the development and distribution of new MS disease-modifying therapies. We have a lot to talk about! Are you ready for RealTalk MS??! ___________ Check out Episode 3 of the National MS Society's Ask an MS Expert Webinar Series 1:04 Federal government refuses to re-open Affordable Care Act enrollment during pandemic 3:06 Federal government issues guidance to avoid healthcare discrimination based on disability 5:09 COVID-19 is impacting drug development 10:24 My Interview with Dr. Marwa Kaisey 12:00 Share this episode 23:32 Donate to Walk-MS 23:58 ___________ SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/136 ___________ ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.comPhone: (310) 526-2283 ___________ LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Give RealTalk MS a Rating & Review National MS Society's Ask An MS Expert Video Replay What You Need to Know About Coronavirus (COVID-19) COVID-19 Resources for Caregivers The RealTalk MS Continuing the Conversation Facebook Group BULLETIN: Civil Rights, HIPAA, and the Coronavirus Disease 2019 (COVID-19) Federal Coronavirus Response and Economic Stimulus Information Jon's WALK-MS Fundraising Page Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating & Review ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 136 Hosted By: Jon Strum Guests: Dr. Marwa Kaisey Tags: MS, MultipleSclerosis, MSResearch, MSActivist, MSSociety, Ocrevus, Coronavirus, COVID19, RealTalkMS Privacy Policy
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