Podcasts about ocrevus

Every five minutes, someone somewhere in the world is diagnosed with MS. But getting that diagnosis can be challenging. And the evidence is clear that early intervention makes a difference. The sooner someone can begin a disease-modifying therapy, the better their outcome is going to be. World MS Day is May 30th, and this year, World MS Day is focused on eliminating the obstacles that get in the way of a timely and accurate diagnosis.    I thought World MS Day would be the perfect time to invite Meredith O'Brien to join me to discuss her new book, Uncomfortably Numb 2: An Anthology for Newly-Diagnosed MS Patients. We'll also explain how the drastic cuts to Medicaid funding that were approved by the U.S. House of Representatives will affect hundreds of thousands of people with MS, and how the additional changes made to the Affordable Care Act will leave millions of Americans without health insurance. We're sharing the results of a study that may have identified how B-cells infected by the Epstein-Barr Virus migrate into the brain. And we'll explain why that could be the activity that triggers MS. We'll tell you about a study that makes the case for treating pediatric MS with Ocrevus. And we'll share the results of a study that discovered an association between inflammation-causing molecules and frailty among people with relapsing forms of MS. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: World MS Day   :22 U.S. House of Representatives Vote to Gut Healthcare in America  2:29 Get involved! Become an MS Activist today!  3:38 A research team has demonstrated how EBV-infected B-cells migrate to the brain  4:28 Researchers demonstrate the efficacy of Ocrevus in treating pediatric MS  7:13 Researchers show an association between frailty and an inflammatory molecule  8:57 Meredith O'Brien discusses her new book, Uncomfortably Numb 2: An Anthology for Newly-Diagnosed MS Patients  11:05 Share this episode  24:51 Have you downloaded the free RealTalk MS app?  25:12 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/404 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Become an MS Activist Web: https://nationalmssociety.org/advocacy World MS Day https://worldmsday.org Uncomfortably Numb 2: An Anthology for Newly-Diagnosed MS Patients https://amazon.com/Uncomfortably-Numb-Anthology-Newly-Diagnosed-Patients/dp/1954332580/ref=sr_1_1 STUDY: Epstein-Barr Virus Induces Aberrant B Cell Migration and Diapedesis Via FAK-Dependent Chemotaxis Pathways https://nature.com/articles/s41467-025-59813-z STUDY: Ocrelizumab for Relapsing Pediatric Multiple Sclerosis https://sciencedirect.com/science/article/abs/pii/s2211034825002810 STUDY: Association Between Frailty and Inflammatory Cytokines in Patients with Multiple Sclerosis: A Case-Control Study https://sciencedirect.com/science/article/abs/pii/s1043466625000924 Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 404 Guest: Meredith O'Brien Privacy Policy

Last week, at the American Academy of Neurology annual meeting, Dr. Amit Bar-Or received the John Dystel Prize for Multiple Sclerosis Research for his multiple achievements that have advanced our knowledge of neuroimmunology, precision medicine, and biomarkers in MS. We talked with Dr. Bar-Or about how some of the latest discoveries in MS research would impact patient care.   Tolebrutinib, an investigational disease-modifying therapy, is currently making its way through the FDA's regulatory process. Last week, the results of the Phase 3 clinical trials for Tolebrutinib were published, and we're sharing the details. We'll also tell you about MindGlide, an AI-powered tool for analyzing MRI scans that will significantly reduce MRI exam times. We're talking about the results of the Phase 3 clinical trial for high-dose Ocrevus. And we'll tell you about a cell therapy that doesn't use stem cells that successfully repaired myelin in the mouse model of MS -- twice!  We have a lot to talk about! Are you ready for RealTalk MS??! Congratulations to Dr. Stephen Hauser and Dr. Alberto Ascherio  :22 This Week: The impact of breakthrough MS research on MS care  2:17 Results of the phase 3 clinical trials for Tolebrutinib have been published  3:07 An AI-powered tool for analyzing MRI scans will significantly reduce MRI exam times for patients  4:21 Results of the phase 3 clinical trial for high-dose Ocrevus  8:13 A cell therapy that doesn't use stem cells has successfully repaired myelin in the mouse model of MS -- twice!  10:14 Dystel Prize winner Dr. Amit Bar-Or discusses how some of the latest discoveries in MS  research will impact MS care  12:39 Share this episode  22:36 Have you downloaded the free RealTalk MS app?  22:56 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/397 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Become an MS Activist Web: https://nationalmssociety.org/advocacy Email: msactivist@nmss.org RealTalk MS Episode 310: The Face Laughs While The Brain Cries: The Education of a Doctor with Dr. Stephen Hauser https://realtalkms.com/310 RealTalk MS ECTRIMS Extra: Results from the Phase 3 Clinical Trial for Tolebrutinib and Relapsing-Remitting MS with Dr. Jiwon Oh https://realtalkms.com/ectrims244 VIDEO: RealTalk MS ECTRIMS Extra: Results from the Phase 3 Clinical Trial for Tolebrutinib and Relapsing-Remitting MS with Dr. Jiwon Oh https://youtu.be/zcBmAHRTotA VIDEO: RealTalk MS ECTRIMS Extra: Results from the Phase 3 Clinical Trial for Tolebrutinib and Nonrelapsing Secondary Progressive MS with Dr. Robert Fox https://youtu.be/tJQ93qdlXrU STUDY: Tolebrutinib Versus Teriflunomide in Relapsing Multiple Sclerosis https://nejm.org/doi/full/10.1056/NEJMoa2415985 STUDY: Tolebrutinib in Nonrelapsing Secondary Progressive Multiple Sclerosis https://nejm.org/doi/full/10.1056/NEJMoa2415988 Enabling New Insights from Old Scans By Repurposing Clinical MRI Archives for Multiple Sclerosis Research https://www.nature.com/articles/s41467-025-58274-8 Fibroblast Technology https://fibrobiologics.com/technology/#cnsms Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 398 Guests: Dr. Amit Bar-Or Privacy Policy

Warrior: Larry Powalisz AI: Primary Progressive Multiple Sclerosis HSCT: May 2022 Superpower: humbled by MS How dedicated are you to health and wellness? How committed are you to helping people halt autoimmune disease? After Larry's left hand went numb and he was diagnosed with MS, the only option his neurologist offered was Ocrevus. His research led him to HSCT at Clinica Ruiz. Upon returning home, Larry was inspired to help others gain access to HSCT and he founded a nonprofit organization to help cover the costs, but soon learned that fundraising for HSCT was not enough. He then founded Adia Med, now a publicly traded company to offer HSCT and other treatments to people battling autoimmune diseases. Tune in to learn more about Larry's journey with HSCT, how he is a guinea pig at Adia, and his dedication to making HSCT more accessible to individuals with autoimmune disease. Be sure to visit our website, HSCTWarriorsPodcast.org where you can find notes from today's episode, submit ideas or feedback, or connect with HSCT Warriors, Inc. and schedule time to “Talk with a Warrior”, find the latest research and resources, or explore information about locations. Special thanks to musical genius Billy Alletzhauser for sharing his superpowers to produce the soundtrack, and to audio guru Jacob Kinch for engineering the audio to make this podcast possible. You can find us when you subscribe on SoundCloud, iTunes or wherever you find podcasts. It has been great to connect with Warriors worldwide, so please reach out if you're interested in sharing your story. We would love to learn how the podcast has helped your journey with autoimmune disease so if you could take a moment, leave us a comment on instagram or share feedback on our website. We hope you'll tune in next Wednesday for another episode, highlighting another HSCT Warrior. Until then, be a snowflake and embrace your superpowers. Be kind. Be well. _________________________________ Jen Stansbury Koenig and the producers disclaim medical influence and responsibility for any possible adverse effects from the use of information contained herein. If you think you have a medical problem, please contact a licensed physician. Resources: Adia Med outpatient HSCT clinic in Winter Park, Florida MS Heal the World nonprofit organization MS Hope and the Best Bet Diet for MS Brandon Bieber, neurologist Aaron Boster, neurologist Richard Burt, Everyday Miracles

In de donkere en koudere maanden keren we letterlijk en figuurlijk naar binnen. De herfst en winter nodigen uit tot verstilling en reflecteren. Net als in de natuur is het loslaten geblazen en bereiden we ons onder de kerstboom of 'n dekentje op de bank voor op de meer uitbundige seizoenen. Want: in de lente en zomer moeten we er weer veel op uit. Húp, naar buiten, onder de mensen zijn en het leven vieren! Tja. Nee dus. Bij mij werkt het sinds een paar jaar niet meer zo. Als de temperatuur stijgt en half Nederland naar het strand scheurt, op een festival staat of 'n BBQ-feestje heeft met vrienden, lig ik in mijn eentje in m'n hangmat in de schaduw of onder de airco met de gordijnen dicht. Hitte maakt de MS heviger en mij dus zieker.  Sinds ik Ocrevus krijg toegediend, ben ik in het begin van de herfst ook enorm aan het stoeien met mijn gezondheid. Gelukkig slaat dat halverwege het seizoen om en huppel ik de winter in. Dan voel ik me weer sterk en fit en ben ik zoveel mogelijk buiten.  Naar binnen keren en reflecteren doe ik elke dag en aan het einde van het jaar heus een beetje extra. Net als het leven vieren. Zo werkt het voor mij. En ik leef m'n leven dan ook graag op mijn manier. Ik wil het ‘anders' en mijn lijf vraagt om ‘anders'. ‘Anders' omdat ik afwijk van hoe de meeste mensen het doen en van 'hoe het heurt'. Maar, wie bepaalt dat eigenlijk? Ik dus. It's my lijf/life. Lekker hoor!

Good morning from Pharma and Biotech Daily: the podcast that gives you only what's important to hear in Pharma and Biotech world.Roche CEO opposes Novo Holdings' acquisition of Catalent, urging for it to be blocked. Roche exceeded Q3 sales expectations, driven by the success of drugs like Ocrevus and Vabysmo. Pfizer's RSV vaccine has been approved by the FDA for a wider adult population. Novo Nordisk has raised concerns with the FDA about the complexity of compounders producing its drug Semaglutide. Alto Neuroscience's depression treatment did not meet expectations in a mid-stage trial, echoing Acelyrin's setback last year. Trilink Biotechnologies has launched customized mRNA sets for screening studies. Updates on Trodelvy's withdrawal for bladder cancer, Sage Therapeutics' layoffs, and more are also featured. Pfizer has downsized with 75 job cuts at a North Carolina site. Opportunities in the life sciences industry are also highlighted.Thank you for listening to Pharma and Biotech Daily, stay tuned for more updates.

Erfahre mehr über B-Zell-Depletionen, wie Ocrevus, Kesimpta, Bonspri, Mabthera, Rituxan und Briumvi, für aktive RRMS & SPMS und frühe PPMS. Du kannst den vollständigen Beitrag auf meinem Blog nachlesen: https://ms-perspektive.de/274-b-zell-depletion B-Zell-Depletions-Therapien wie Ocrelizumab (Ocrevus), Ofatumumab (Kesimpta, Bonspri), Rituximab (Mabthera, Rituxan) und Ublituximab (Briumvi) sind zu wichtigen Instrumenten bei der Behandlung von Multipler Sklerose (MS) geworden. Diese Behandlungen zielen speziell auf B-Zellen ab, eine Art von Immunzellen, die am Entzündungsprozess von MS beteiligt sind, und reduzieren diese. B-Zell-Therapien gelten als einige der spezifischsten und wirksamsten verlaufsmodifizierenden Therapien, die heute verfügbar sind, und bieten einen maßgeschneiderten Ansatz zur Verringerung der Krankheitsaktivität und des Fortschreitens der MS. In diesem Beitrag geht es darum, wie diese Therapien innerhalb der MS-Behandlungsoptionen eingeordnet werden und was ihr Zulassungsstatus und ihre Wirksamkeit für verschiedene Patientengruppen bedeuten. Bitte beachte, dass ich hier nur einen Überblick geben kann. Deine Neurologin und MS-Schwester sollten dich ausführlich über die richtige Therapie für dich beraten. Sie kennen deinen allgemeinen Gesundheitszustand und du solltest auch über deine Ziele, Wünsche, Ängste und Vorlieben sprechen, damit diese berücksichtigt werden können. Inhaltsverzeichnis Allgemeine Informationen Wie werden B-Zell-Depletionen - Ocrelizumab (Ocrevus), Ofatumumab (Kesimpta, Bonspri), Rituximab (Mabthera, Rituxan), Ublituximab (Briumvi) in den Immuntherapien eingeordnet? Wofür sind B-Zell-Depletionen - Ocrelizumab (Ocrevus), Ofatumumab (Kesimpta, Bonspri), Rituximab (Mabthera, Rituxan), Ublituximab (Briumvi) zugelassen? Wie sieht die Situation für spezielle Patientengruppen aus? Wer sollte Ocrelizumab (Ocrevus), Ofatumumab (Kesimpta, Bonspri), Rituximab (Mabthera, Rituxan), Ublituximab (Briumvi) vermeiden? Wie wirken Ocrelizumab (Ocrevus), Ofatumumab (Kesimpta, Bonspri), Rituximab (Mabthera, Rituxan) und Ublituximab (Briumvi)? Wie wird es eingenommen? Wie wirksam sind Ocrelizumab (Ocrevus), Ofatumumab (Kesimpta, Bonspri), Rituximab (Mabthera, Rituxan), Ublituximab (Briumvi)? Risiken und Nebenwirkungen von Ocrelizumab (Ocrevus), Ofatumumab (Kesimpta, Bonspri), Rituximab (Mabthera, Rituxan), Ublituximab (Briumvi) Impfungen Quellen Schlussbemerkung Quellen Für die Erstellung des Inhalts habe ich folgende Quellen verwendet: Vorlesung über pädiatrische Multiple Sklerose von Prof. Dr. Jutta Gärtner im Rahmen des Masterstudiengangs Multiple-Sklerose-Management Vorlesung über B-Zell-depletierende Therapien von Prof. Dr. Xavier Montalban im Rahmen des Masterstudiengangs Multiple-Sklerose-Management Qualitätshandbuch der KKNMS zu Ocrelizumab (Ocrevus), Ofatumumab (Kesimpta, Bonspri), Ublituximab (Briumvi) MS-Selfie-Infokarten von Prof. Dr. Gavin Giovannoni Deutschsprachiges Multiple Sklerose und Kinderwunschregister (DMSKW) Deutsche DECIMS-Informationen zu Ocrelizumab --- Vielleicht möchtest du auch einen Blick auf die Beiträge zu den anderen Immuntherapien werfen: #256: Dimethylfumarat (Tecfidera) und Diroximelfumarat (Vumerity) #258: Glatirameracetat (Copaxone, Brabio) #261: Interferon-beta (Avonex, Betaferon, Extavia, Plegridy, Rebif) #264: Teriflunomid (Aubagio) #266: Natalizumab (Tysabri, Tyruko)  #268: S1P-Modulatoren – Fingolimod (Gilenya), Ozanimod (Zeposia), Ponesimod (Ponvory), Siponimod (Mayzent) #270: Alemtuzumab (Lemtrada, Campath) bei hochaktiver Multipler Sklerose #272: Cladribin (Mavenclad, Leustatin, Litak) bei hochaktiver MS Bis bald und mach das Beste aus Deinem Leben, Nele Mehr Informationen und positive Gedanken erhältst Du in meinem kostenlosen Newsletter. Hier findest Du eine Übersicht zu allen bisherigen Podcastfolgen.

Welcome to Living Well with MS, the podcast that empowers you to take control of your health and wellbeing. Today we're sharing the highlights from our ‘Ask Aaron' webinar, recorded in front of a global audience, with the incredible Dr Aaron Boster. Dr Boster is a board-certified neurologist who specialises in MS, and we're delighted to have him answering a huge range of questions from our community! From medications to MRI's and pregnancy to cold showers, Dr Boster gave us so many brilliantly informative answers - we hope you find this episode really useful. Let us know what you think!     Watch this episode on YouTube here. Keep reading for the key episode takeaways.     Topics and Timestamps:    01:49 Defining benign MS  05:05 How to get the most out of your time with your neurologist  09:32 The DMTs that help with brain atrophy  09:46 MRI's as a way to show the rate of brain atrophy  18:20 Aubagio for secondary progressive MS  22:11 The future of Ocrevus dosing guidelines and becoming pregnant on ocrelizumab  26:31 Treating MS-relating dystonia  28:37 Treatments for MS-related bladder dysfunction   35:15 Low-dose Naltrexone for MS  39:00 The benefits of cold showers   39:38 Immune reconstitution therapies   43:22 Managing MS with diet and exercise   To join us live for the next webinar or watch the original presentation head to our website overcomingms.org    More info and links:   Dr Boster was on five previous Living Well with MS episodes: S1E11: Making the Right Medication Choices    S2E17: Lifestyle Choices and Their Impact on MS   S3E43: Let's Talk About Sex (and MS)  S5E5 Webinar highlights from Ask Aaron with Dr. Aaron Boster  S5E36 Webinar Highlights: Ask a Neurologist with Dr Aaron Boster  Check out Dr Boster's popular YouTube channel covering all aspects of MS  New to Overcoming MS? Visit our introductory page   Connect with others following Overcoming MS on the Live Well Hub   Visit the Overcoming MS website    Follow us on social media:  Facebook  Instagram  YouTube  Pinterest  Don't miss out:   Subscribe to this podcast and never miss an episode. Listen to our archive of Living Well with MS episodes here. If you like Living Well with MS, please leave a 5-star review.  Feel free to share your comments and suggestions for future guests and episode topics by emailing podcast@overcomingms.org.  Make sure you sign up to our newsletter to hear our latest tips and news about living a full and happy life with MS.  Support us:   If you enjoy this podcast and want to support the ongoing work of Overcoming MS, we would really appreciate it if you could leave a donation here. Every donation, however small, helps us to share the podcast with more people on how to live well with MS. 

When it comes to living your best life when you're living with MS, the first step is to make smart lifestyle choices. Maintaining a healthy lifestyle doesn't require pills, injections, or infusions. And making smart lifestyle choices can make a real, measurable difference in your quality of life. Joining me to talk about the benefits of maintaining a healthy lifestyle and share some tips and strategies for living your best life when you're living with MS is Dr. Lisa Doggett, a family and lifestyle medicine physician at the MS and Neuroimmunology Center at Dell Medical School at the University of Texas at Austin. Dr. Doggett was diagnosed with MS in 2009, and she's the author of the memoir, ‘Up the Down Escalator: Medicine, Motherhood, and Multiple Sclerosis'. We'll also tell you about a research team that's looking to improve the way that stem cells are transplanted -- and why that's a good thing for people with MS. We'll share the details behind the European Union's approval of a new Ocrevus formulation that makes the DMT much more patient-friendly. You'll hear about the blood test for measuring a biomarker that can predict future MS disease worsening that has just gained approval in the European Union. And we'll tell you where to find the video replay of Mobility Challenges in Progressive MS, the most recent webcast hosted by the International Progressive MS Alliance. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: Lifestyle changes that will improve your quality of life  :22 Researchers receive a grant to develop a better way to transplant stem cells  1:30 Subcutaneous Ocrevus has been approved in the European Union  3:50 Blood test to measure a biomarker that can predict future MS disease worsening receives approval in the European Union 5:35 Catch the video replay of the latest Progressive MS Alliance webcast  7:13 Dr. Lisa Doggett offers strategies for making lifestyle choices that will make a difference in your quality of life  8:20 Share this episode  26:50 Next Week: Dr. Jaime Imitola introduces us to VISIBL-MS  27:10 Have you downloaded the free RealTalk MS app?  27:39 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/357 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com VIDEO REPLAY of the International Progressive MS Alliance Global Webcast: Mobility Challenges in Progressive MS https://youtube.com/watch?v=YGA-2k9JCLg&t=14s Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 357 Guests: Dr. Lisa Doggett Privacy Policy  

Lower levels of Vitamin D have been associated with a higher risk of developing MS and an increase in MS disease activity. And, for years, scientists have worked to better understand the relationship between Vitamin D and MS. Joining me to talk about the role that Vitamin D plays in MS is Dr. Ellen Mowry. Dr. Mowry is a Professor of Neurology and Epidemiology, and the Co-Director of the Multiple Sclerosis Precision Medicine Center of Excellence at Johns Hopkins University. Dr. Mowry is also one of the leading experts on Vitamin D and MS in the world. The National MS Society's virtual MS Activist Rally is happening in just two days, on April 25th! We're sharing registration details.  We'll tell you about a scientific breakthrough that has identified a specific autoantibody signature that can accurately predict MS years before someone experiences any MS symptoms. We're sharing details of a clinical trial that focused on the efficacy of Ocrevus in treating Black and Hispanic people living with MS. We'll also share the details of this trial's novel design that can serve as a blueprint for successfully engaging members of minority communities in future clinical research. We'll explain one reason why we aren't hearing as much news about the benefits of using cannabis to treat MS symptoms, and why cannabis use may actually be creating a new set of problems for people living with MS. And we're sharing study results that show that an artificial intelligence program may have a better bedside manner than your neurologist. We have a lot to talk about! Are you ready for RealTalk MS??! Don't miss it! The MS Activist Rally is happening on 4/25!  :22 This Week: The relationship between Vitamin D and MS  2:50 Autoantibody signature predicts MS years before symtoms develop  3:45 Clinical trial results show that Black and Hispanic people with MS respond well to Ocrevus  7:58 Is cannabis working for people with MS?  11:13 Study results show that ChatGPT answers questions about MS with more empathy than neurologists  14:28 Dr. Ellen Mowry updates us on what the latest research is revealing about Vitamin D and MS  18:31 Share this episode  32:06 Have you downloaded the free RealTalk MS app?  32:26 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/347 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com REGISTER for the MS Activist Rally https://events.zoom.us/ev/Ame2jWSuHmriG94cyQmlWHr45mgnzxkDv8oMZRGsrS3ZxiSj5rro~Anqb3dHg3ewiz4KNHn2Ena4bgli_WXlza_zcygZN3GinnleB6rO15OCzGQ STUDY: An Autoantibody Signature Predictive of Multiple Sclerosis https://www.nature.com/articles/s41591-024-02938-3 RealTalk MS Episode 346: Why Members of Minority Communities May Face a More Severe MS Disease Course with Dr. Annette Langer-Gould https://realtalkms.com/346 STUDY: ChatGPT vs Neurologists: A Cross-Sectional Study Investigating Preference, Satisfaction Ratings, and Perceived Empathy in Responses Among People Living with Multiple Sclerosis https://link.springer.com/article/10.1007/s00415-024-12328-x Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 347 Guest: Dr. Ellen Mowry Privacy Policy  

MDJ Script/ Top Stories for April 2nd              Publish Date:  April 2nd             Commercial: From the Ingles Studio, Welcome to the Marietta Daily Journal Podcast.    Today is Tuesday, April 2nd, and Happy heavenly Birthday to Marvin Gaye ***04.02.24 – BIRTHDAY – MARVIN GAYE*** I'm Dan Radcliffe and here are the stories Cobb is talking about, presented by Credit Union of Georgia.  One Injured in Shooting at Marietta Laundromat One Arrested After Domestic Dispute Leads to SWAT Response Kennesaw House Fire Leaves Five People Without a Home   All of this and more is coming up on the Marietta Daily Journal Podcast, and if you are looking for community news, we encourage you to listen and subscribe!    BREAK: CUofGA   STORY 1: One Injured in Shooting at Marietta Laundromat A dispute over money at a Marietta laundromat turned violent when an argument between two acquaintances, Corey Jones, 31, and Billie Higdon, 71, escalated into gunfire. The confrontation, occurring in the parking lot of the QT Coin and Laundry, led to Jones being shot in the arm. He was rushed to the hospital with injuries deemed non-life-threatening. Higdon was apprehended by the police for questioning regarding the incident. Marietta Police Department's spokesperson, Officer Chuck McPhilamy, indicated that charges against Higdon are expected but will be finalized later. Witnesses highlighted the financial disagreement as the root cause of the altercation. STORY 2: One Arrested After Domestic Dispute Leads to SWAT Response In Marietta, a domestic dispute at Laurel Hills Preserve apartments escalated into a standoff, necessitating intervention by the Marietta Police Department's SWAT team. The situation unfolded Sunday evening after a report of a physical altercation between partners, resulting in one person's injury. Aleigha Ward, 31, barricaded herself inside, refusing cooperation and vowing to avoid jail at all costs. Despite negotiations, Ward, who was armed and made threats captured on bodycam footage, remained defiant. The standoff concluded around midnight when SWAT successfully apprehended Ward without further incident. She now faces charges including terroristic threats and misdemeanor battery, with her bond set at $2,420. STORY 3: Five People Displaced by Kennesaw House Fire A house fire in Kennesaw on Saturday night led to five people being displaced. Responding swiftly, Cobb County Fire crews arrived within six minutes and managed to put out the fire in roughly 30 minutes. According to Nick Danz, the public information officer for the department, there's suspicion that natural gas contributed to the fire's rapid spread, following a loud pop reported by residents. The incident began outside the home before engulfing it. In a stroke of good fortune, the family dog was found and rescued during a follow-up search of the premises.   We have opportunities for sponsors to get great engagement on these shows. Call 770.799.6810 for more info.    We'll be right back    Break: CURIOSITY LAB BIKE RACE – DRAKE   STORY 4: Crash in North Cobb Leaves Two Seriously Injured A serious traffic accident near Kell High School on Saturday morning resulted in significant injuries for two people. The collision, involving 32-year-old Ali Babar from Marietta on a Honda CB500 motorcycle and 90-year-old Marilyn Jensen from Woodstock in a Honda Civic, occurred just before 9:45 a.m. at the intersection of Canton Road and Farm Ridge Drive. According to Cobb Police spokesperson Officer Aaron Wilson, the crash happened when Jensen, attempting a left turn, crossed into Babar's path, causing the motorcycle to hit the curb and Babar to be thrown onto the road. Both Babar and Jensen were seriously injured and taken to Wellstar Kennestone Hospital. The investigation is ongoing, with police urging witnesses to contact Cobb Police at 770-499-3987 with any information. STORY 5: Wellstar Names New Kennestone President Lorrie Liang is the newly appointed president of Wellstar Kennestone Regional Medical Center and Wellstar Windy Hill Hospital, where she will also serve as senior vice president of Wellstar Health System. Bringing over 25 years of healthcare experience from her previous role at Sarasota Memorial Hospital in Florida, Liang managed a 900-bed facility, showcasing her proficiency in hospital operations and healthcare systems management. She holds a master's degree in health services administration. Liang takes over from Mary Chatman, aiming to lead Kennestone's executive team, enhance collaborations across Wellstar markets, and drive further successes by engaging with community and healthcare stakeholders. We'll be back in a moment    Break: TEDS – INGLES 2   STORY 6: 'There is Hope': Mableton Councilwoman's Fight for MS Diagnosis Patricia Auch, serving on the Mableton City Council, encountered a life-changing challenge when diagnosed with multiple sclerosis, an autoimmune disease that compromises the protective covering of nerve fibers, leading to symptoms like vision loss in one eye. Navigating her diagnosis was fraught with difficulties, as skepticism from healthcare professionals delayed recognition and treatment, despite clear MRI findings. This reflects broader issues in healthcare, where studies indicate women, including those of color, often face dismissal of their pain, adversely affecting their care. Auch's determination led to her starting treatment with OCREVUS, thankfully covered by insurance, though it's notably costly. With her husband and community's support, Auch remains optimistic, ready to face her new reality with strength. STORY 7: Paving Project to Close Two Car Lots Near Chattahoochee River The Chattahoochee River National Recreation Area is in the process of a repaving project, temporarily closing the Columns Drive parking lot on Tuesday and the Powers Island lot on April 8. Meanwhile, the Interstate North lot has reopened. Though Columns Drive will be closed to vehicular traffic, it remains open for pedestrians and cyclists. This initiative aims to fix sub-surface issues, improve traffic flow and visibility, and update signage. The Akers Mill and Powers Island lots have been repaved as part of this project, which won't change the size or layout of the parking areas. Park officials are advising visitors to use alternative parking lots to reduce congestion and express gratitude for the public's patience during these enhancements. Break: ATL HEALTH FAIR   Signoff-   Thanks again for hanging out with us on today's Marietta Daily Journal podcast. If you enjoy these shows, we encourage you to check out our other offerings, like the Cherokee Tribune Ledger Podcast, the Gwinnett Daily Post, the Community Podcast for Rockdale Newton and Morgan Counties, or the Paulding County News Podcast. Read more about all our stories and get other great content at MDJonline.com.     Did you know over 50% of Americans listen to podcasts weekly? Giving you important news about our community and telling great stories are what we do. Make sure you join us for our next episode and be sure to share this podcast on social media with your friends and family. Add us to your Alexa Flash Briefing or your Google Home Briefing and be sure to like, follow, and subscribe wherever you get your podcasts.   Produced by the BG Podcast Network   Show Sponsors: ingles-markets.com cuofga.org drakerealty.com henrycountysheriffga.gov acc.org/ATLHealthFair tedsmontanagrill.com   #NewsPodcast #CurrentEvents #TopHeadlines #BreakingNews #PodcastDiscussion #PodcastNews #InDepthAnalysis #NewsAnalysis #PodcastTrending #WorldNews #LocalNews #GlobalNews #PodcastInsights #NewsBrief #PodcastUpdate #NewsRoundup #WeeklyNews #DailyNews #PodcastInterviews #HotTopics #PodcastOpinions #InvestigativeJournalism #BehindTheHeadlines #PodcastMedia #NewsStories #PodcastReports #JournalismMatters #PodcastPerspectives #NewsCommentary #PodcastListeners #NewsPodcastCommunity #NewsSource #PodcastCuration #WorldAffairs #PodcastUpdates #AudioNews #PodcastJournalism #EmergingStories #NewsFlash #PodcastConversationsSee omnystudio.com/listener for privacy information.

We're all living longer and that includes people living with MS. And as they age, people with MS are asking new questions. Is there a need to stay on disease-modifying therapy after the age of 60?  How do we know whether a new symptom is a symptom of MS or a symptom of aging? Does an additional age-related health condition make treating MS more difficult? Does treating MS make treating that new health condition more difficult? How can we best offset the social isolation that's often associated with MS and with aging? This week, Dr. Aaron Boster joins me on a deep dive into aging with MS. Dr. Boster brings 19 years of experience as an MS clinician. He's participated in over 65 clinical trials. And, following its FDA approval, Dr. Boster administered the very first dose of Ocrevus in the world. Dr. Boster is well known throughout the MS community for the countless number of short videos and live Q&A sessions he regularly hosts and posts on YouTube. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: Aging with MS :22 Dr. Aaron Boster tackles the multifaceted subject of aging with MS  1:59 Share this episode  38:09 Have you downloaded the free RealTalk MS app?  38:32 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/337 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 337 Guest: Dr. Aaron Boster Privacy Policy

In a paradigm-shifting discovery, researchers uncovered that B cells, not T cells, wield significant influence on orchestrating neurological damage in MS. Join UCSF Professor Dr. Stephen Hauser as he shares the remarkable odyssey from hurdles to triumphs of developing B cell monoclonal antibody treatment for multiple sclerosis.  Disease impact, safety concerns and personalization of MS treatment of these medications including Ocrevus (ocrelizumab), Kesimpta (ofatumumab) and Briumvi (ublituximab) are highlighted.  Brain-penetrant BTK inhibitor therapies that may offer more direct targeting of B cells within the central nervous system, potentially unlocking new possibilities in treating progressive forms of MS. Professor Heinz Wiendl explores the connection between Epstein-Barr virus infection of B cells and the initiation and progression of MS including trials investigating strategies to target EBV-infected B cells. Pioneering approaches like CAR-T therapy and brain shuttle techniques provide optimism for the next generation of MS treatment. Barry Singer MD, Director of The MS Center for Innovations in Care, interviews:  Stephen Hauser MD, Professor of Neurology at the University of California, San Francisco (UCSF) and Director of the UCSF Weill Institute for Neurosciences Heinz Wiendl MD, Professor of Neurology and Chair of the Department of Neurology at the University Hospital of Muenster in Germany

Episode 613 This episode I talk about Multiple Sclerosis stuff: Cognition Testing, Retinal Test, Secondary Progressive Multiple Sclerosis SPMS, Delayed Ocrevus Risks. #MS #MultipleSclerosis #healthtalk #MonSter #brain #mswinter #cognitive #SPMS #Ocrevus #eyetest Send comments, questions and tips to kevintheduckpool@gmail.com please help us out by rating and reviewing us and telling a friend.  Also check out audio and video versions of Crimson Cowl Comic Club & Under the Cowl podcasts. A fun variety of great people talk comic books, entertainment or whatever and you can see or hear me on many episodes of those podcasts as well with many more great episodes to come out in the future. --- Send in a voice message: https://podcasters.spotify.com/pod/show/kevin-kleinhans/message Support this podcast: https://podcasters.spotify.com/pod/show/kevin-kleinhans/support

In this heartfelt episode of 'The Just M.S. Show,' I, Justin Loizos, share my recent experience with a medical infusion. Despite the challenges, including a decision to use a walker and some physical setbacks, the day was marked by moments of positivity and resilience. I discuss the ups and downs, from the amazing support of my nurse to the difficulties my body faced, such as my back giving out. I also touch on the improvements I've noticed, including a better bladder pill and the comfort of snacks. This episode isn't just about the physical journey; it's a deeper dive into the mental fortitude required to keep hope alive in the face of multiple sclerosis, especially during the tough times over the past months and years. Join me as I reflect on the importance of support systems like the hope program and MS peer groups, and how they help in not giving up hope, even when walking and standing have become significant challenges.The Just MS (Multiple Sclerosis) Show, w host Justin Loizos, is a podcast that connects, educates and tries to uplift others living with multiple sclerosis. It provides real-life stories, interviews, and information about DMTs (disease modification therapies) and updates on research developments.www.justmultiplesclerosis.com

Welcome to Living Well with MS. In this episode, we are sharing the highlights from one of our ‘Ask Aaron' webinars, where neurologist, Dr Aaron Boster, answers questions about MS from the community. In this episode, Dr Boster covers a range of topics, including heat intolerance, when to start a DMT and his tips for self-managing MS. You can watch the original webinar here. Keep reading for the key episode takeaways.   Topics and Timestamps: 02:13 Considerations for changing to a less stressful job and stronger DMTs. 05:09 Talking to clinicians about stress. 06:25 Hyperbaric oxygen therapy. 08:11 Stem cell transplants for PPMS. 10:35 Tysabri during pregnancy and breastfeeding. 12:23 MS and Stroke. 13:52 MRI showing brain cysts. 16:57 Betaferon and slow progression. 19:45 Changing from Tysabri to Ocrevus. 21:41 Vertigo. 23:05 Ampyra for walking, spasticity, and nerve pain. 25:50 Types of inflammation. 28:05 Anesthetic or epidural and MS. 30:15 B-cell depletion therapy and allergies. 31:17 Tips for self-managing MS. 37:42 Heat intolerance. 40:30 When to start on a DMT. 41:22 Ocrevus and low lymphocyte levels. 43:40 Diet and MS. 48:50 Nausea as an MS symptom. 51:30 CBD for MS. 52:45 Bursitis and MS. 53:36 Choosing a DMT and considering side effects. 55:16 Invisible illness in an ableist world. Selected Key Takeaways: Exercise as part of your daily lifestyle  34:42 “Exercising as part of a lifestyle means that if you do it, you're not rewarded. There's no reward for doing something as part of your lifestyle and if you don't do it, there's no punishment - you're not sent to the naughty corner. So, for example, I have a lifestyle of brushing my teeth. I don't tweet about it. I don't make YouTube videos about it. I don't even talk about it when I get to work. It's just something I do every morning and if I happen to forget to brush my teeth before I head off to the office, I'll run upstairs and do it. This is part of my lifestyle. So, I need people impacted by MS to exercise as part of their lifestyle.” Plan your day to minimise symptoms like heat intolerance 39:43 “We can conserve energy during those times when it's really hot out. Whereas I would normally encourage a patient to park at the back of the parking lot to get their steps in. If it's the middle of the day, [walking that far is] going to sap all your energy so that when you get to the grocery store you can't shop, that doesn't really work very well, does it? And so that's an example where we would have someone drop us off at the threshold of the grocery store so that you can be successful in your shopping.” Be brave in using mobility aids and seeking accommodations. 57:27 “I tell people who are embarrassed by their cane, ‘Don't you dare be embarrassed by your cane, a cane is a sign of intelligence.' A person with a cane would like to not fall. So, when a little boy is walking with [his] mum, and says, ‘Mummy, why is she using a cane?' That's an opportunity for the mother to say, ‘Well, she doesn't want to fall, she has a problem with her leg and the cane helps her.' It normalises it. So, one of the things that we need to do is to be brave. I'll remind you of the definition of bravery, ‘doing something despite being scared'. The second thing is, I want you to be very selfish. You need to be selfish; you live your life once. You're not living your life so some stranger, you don't know, thinks nice polite things about you.” Want to learn more about living a full and happy life with multiple sclerosis? Sign up to our newsletter to hear our latest tips. More info and links: Watch the original webinar here. Dr Boster was on three previous Living Well with MS episodes: S1E11: Making the Right Medication Choices   S2E17: Lifestyle Choices and Their Impact on MS  S3E43: Let's Talk About Sex (and MS) Check out Dr Boster's popular YouTube channel covering all aspects of MS. New to Overcoming MS? Visit our introductory page  Connect with others following Overcoming MS on the Live Well Hub Visit the Overcoming MS website Follow us on social media: Facebook Instagram YouTube Pinterest Don't miss out:  Subscribe to this podcast and never miss an episode. Listen to our archive of Living Well with MS episodes here. If you like Living Well with MS, please leave a 5-star review. Feel free to share your comments and suggestions for future guests and episode topics by emailing podcast@overcomingms.org. Make sure you sign up to our newsletter to hear our latest tips and news about living a full and happy life with MS. Support us: If you enjoy this podcast and want to support the ongoing work of Overcoming MS, we would really appreciate it if you could leave a donation here. Every donation, however small, helps us to share the podcast with more people on how to live well with MS.

Have you ever experienced Crap Gap? You may know it as the end of dosing interval or the weaning-off effect. This refers to the period of time between Ocrevus infusions when you might feel a worsening of MS symptoms. This may include things such as Fatigue, cognitive fog, motor function or balance problems. You know... all the things! Kellie Batts, who has had MS since 2016 shares her experience with Crap Gap as well as her experience over the last seven years with Relapsing-Remitting Multiple Sclerosis. Let's chat it up with Kellie!  Instagram: @_livinglikek https://www.joinuplift.co/ UpLift accepts most insurances and copays start at $25.    Instagram: @thrivingoversurvivingpodcast https://thrivingoversurvivingpodcast.com  

Have you ever experienced Crap Gap? You may know it as the end of dosing interval or the weaning-off effect. This refers to the period of time between Ocrevus infusions when you might feel a worsening of MS symptoms. This may include things such as Fatigue, cognitive fog, motor function or balance problems. You know... all the things! Kellie Batts, who has had MS since 2016 shares her experience with Crap Gap as well as her experience over the last seven years with Relapsing-Remitting Multiple Sclerosis. Let's chat it up with Kellie!  Instagram: @_livinglikek https://www.joinuplift.co/ UpLift accepts most insurances and copays start at $25.    Instagram: @thrivingoversurvivingpodcast https://thrivingoversurvivingpodcast.com  

This week, we're sharing more from the 2023 joint ECTRIMS (European Committee for Treatment and Research in Multiple Sclerosis) and ACTRIMS (Americas Committee for Treatment and Research in Multiple Sclerosis) annual meeting. What if we could identify MS before anyone experienced any of the typical clinical symptoms? Would treating that person with a high-efficacy disease-modifying therapy prevent the clinical symptoms of MS from even developing? Those are the questions that make the study of the MS prodrome so fascinating and important. At the joint ECTRIMS-ACTRIMS meeting, I met up with one of the foremost experts on the prodromal phase of MS, Dr. Helen Tremlett, who shared an update on what she's continuing to learn about the MS prodrome. We'll also tell you about Dr. Jeffrey Huang's work in developing an experimental drug that may stop MS progression and stimulate remyelination. We're sharing a report from Deloitte that analyzes the economic impact of the pandemic gap for people living with MS in Canada. We'll tell you about the results of a study that show lower-efficacy disease-modifying therapies can lead to faster disability accumulation. You'll hear about the work being done to deliver Ocrevus in a subcutaneous injection. And we'll tell you what happened that caused a study focused on stopping your DMT if your MS was stable to be called off. I had the good fortune of speaking with several research presenters at the joint ECTRIMS-ACTRIMS meeting, and I'll be releasing those bonus ECTRIMS Extra Conversations all week long. It's an opportunity for you to listen in to my conversations with some of the top MS research and clinical experts in the world. Be sure to look for these conversations throughout this week! We have a lot to talk about! Are you ready for RealTalk MS??! This Week: More from the largest MS research conference in the world  :22 Don't miss ECTRIMS Extra Conversations all week long!   Georgetown University researchers develop a drug that may stop MS progression and stimulate remyelination  1:20 The cost of the pandemic gap for people living with MS in Canada   3:10 Study shows that lower-efficacy DMTs can lead to faster disability accumulation  7:12 Clinical trial demonstrates that subcutaneous formulation of Ocrevus is safe and effective  10:47 Your MS stable, no relapses for at least 5 years. Can you stop your DMT?  12:33 Dr. Helen Tremlett explains how understanding the MS prodrome can change the future of MS treatment  15:49 Share this episode  21:26 Have you downloaded the free RealTalk MS app?  21:47 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/321 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com REPORT: The Socioeconomic Cost of, and Impact of, COVID-19 on Multiple Sclerosis in Canada https://mscanada.ca/sites/default/files/documents/2023-10/deloitte-covid-19-impact-english.pdf ECTRIMS PRESENTATION: Subcutaneous Ocrelizumab in Patients with Multiple Sclerosis: Results of the Phase 1b Dose-Finding OCARINA 1 Study https://s3.eu-central-1.amazonaws.com/m-anage.com.storage.congrex/abstracts_ectrims2023/148349.pdf ECTRIMS PRESENTATION: Discontinuation of First-Line Disease-Modifying Therapy in Stable MS (DOT-MS): An Early-Terminated Multicenter Randomized Controlled Trial https://s3.eu-central-1.amazonaws.com/m-anage.com.storage.congrex/abstracts_ectrims2023/146784.pdf Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 321 Guest: Dr. Helen Tremlett Privacy Policy

Good morning from Pharma and Biotech Daily, the podcast that gives you only what's important to hear in the Pharma and Biotech world. Here are the key points from today's news:GSK has partnered with Chongqing Zhifei Biological Products to expand sales of its shingles vaccine, Shingrix. The company aims to double sales of the vaccine by 2026.Apellis Pharmaceuticals reports steady demand for its new eye drug, Syfovre, despite safety concerns. Prescriptions for the drug have increased in August after a period of side effect investigations.Amgen has completed its $28 billion acquisition of Horizon, despite challenges from the FTC. The deal was delayed due to concerns about product "bundling," but Amgen agreed to requirements to address these concerns.Merck has released data showing a survival benefit for early treatment with its immunotherapy drug, Keytruda, in the perioperative setting. An approval decision is expected later this month.The medtech sector is facing several financial challenges, including declining stock prices, mergers and acquisitions, investment, and revenues, according to a report from consulting firm EY.Walgreens has announced that Tim Wentworth, a former executive at Cigna and Express Scripts, will become its new CEO starting from October 23.Novo Nordisk has ended a Phase III kidney outcomes study of its drug semaglutide early due to strong efficacy signals. The positive results suggest that semaglutide may have a beneficial impact on kidney function.Biotech bankruptcies have been on the rise in 2023, with a record high of 28 bankruptcies in the sector so far this year.Roche's subcutaneous version of its multiple sclerosis drug Ocrevus has shown promise in a Phase III trial. The subcutaneous formulation performed comparably to the intravenous version of the drug.Biotech company Sana has announced staff layoffs and a refocus on its ex vivo cell therapy platform. The company will be reducing its workforce by 29% and reallocating resources to prioritize its hypoimmune platform.These developments highlight both positive and challenging trends in the Pharma and Biotech industry. Stay tuned for more updates on the latest news.

Welcome to Living Well with MS. In this episode, we are delighted to welcome neurologist, Professor Stephen L. Hauser as our guest. Professor Hauser has been researching MS since the 1970s, and his team's research led to the development of the disease-modifying therapy ‘Ocrevus'. He talks to Geoff about the future of DMTs for MS, what autoimmunity is, and how he and his team developed one of the most world-renowned MS DMTs.   Questions and Timestamps 01:45 Can you introduce yourself and tell us about your work? 04:23 What is autoimmunity and how does it relate to MS and inflammation? 06:37 Are some people more prone to develop autoimmune conditions? 10:11 How can a person get the most out of the time they have with their neurologist? 14:01 The benefits of participating in a clinical trial. 16:01 How is MS similar or different from other brain conditions? 20:11 Is there a role of infection in brain diseases like MS? 23:10 The role of hygiene in autoimmunity. 25:40 Book excerpt and how Ocrevus was developed. 32:53 What's next in B-cell research and MS? 37:58 What tips do you have for lifestyle modifications for people who have MS? More info and links: Read more about Professor Hauser from the American Brain Foundation Read The Face Laughs While the Brain Cries: The Education of a Doctor Read the key episode takeaways and Professor Hauser's bio New to Overcoming MS? Visit our introductory page Connect with others following Overcoming MS on the Live Well Hub Visit the Overcoming MS website Follow us on social media: Facebook Instagram YouTube Pinterest Don't miss out:  Subscribe to this podcast and never miss an episode. Listen to our archive of Living Well with MS episode here. If you like Living Well with MS, please leave a 5-star review. Feel free to share your comments and suggestions for future guests and episode topics by emailing podcast@overcomingms.org. Make sure you sign up to our newsletter to hear our latest tips and news about living a full and happy life with MS. If you enjoy this podcast and want to support the ongoing work of Overcoming MS, you can leave a donation.  

Experiencing difficulty walking is one of the most common mobility challenges faced by people living with MS. The good news is that there are things you can do -- both with a physical therapist and by yourself, at home -- that can make a real difference. Joining me to discuss improving your gait, avoiding falls, and what experts are learning from the latest research in this area is the Director of Research for the Department of Health Care Sciences at Wayne State University School of Medicine, Dr. Nora Fritz. We're also sharing the results of a study that looked at whether disease-modifying therapies had an impact on the number of hospitalizations or visits to the doctor someone with MS might experience over a 22-year period. We'll tell you about a study that measured the outcome for people with relapsing-remitting MS who were treated with autologous hematopoietic stem cell transplantation (aHSCT) compared with the outcome for people with relapsing-remitting MS who were treated with Gilenya, Tysabri, or Ocrevus. We'll share the results from a study that analyzed 56 other studies to determine the prevalence of sexual dysfunction among women living with MS. We'll tell you about a nationwide study that's about to get underway that will try to answer the question, 'Should people with MS over the age of 65 discontinue their disease-modifying therapy?' And we'll remind you about how you can join us in Napa Valley this Saturday, July 29th, for Crush MS. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: Improving your balance and gait  :22 A research team analyzed the risk of hospitalization over a 22-year period for people with MS who were on a disease-modifying therapy and compared those results to people with MS who weren't on a DMT  1:21 Researchers compared patient outcomes associated with autologous hematopoietic stem cell transplantation (aHSCT) and compared them with outcomes associated with Gilenya, Tysabri, and Ocrevus  4:40 A research team in Iran analyzed results from 56 separate studies about sexual dysfunction in women with MS   8:29 Should someone over the age of 65 discontinue their disease-modifying therapy?   11:40 Dr. Nora Fritz discusses gait, balance, fall prevention and more   15:20 Share this episode  33:49 I'll be at Crush MS! Will I see you there?  34:09 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/308 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com STUDY: Disease-Modifying Drugs for Multiple Sclerosis and Subsequent Health Service Use https://pubmed.ncbi.nlm.nih.gov/34949130 Tremlett's MS Research Explained: Disease-Modifying Drugs for Multiple Sclerosis and Subsequent Health Service Use https://tremlettsmsresearchexplained.wordpress.com/category/ms-disease-modifying-drug-research STUDY: Comparative Effectiveness of Autologous Hematopoietic Stem Cell Transplant vs Fingolimod, Natalizumab, and Ocrelizumab in Highly Active Relapsing-Remitting Multiple Sclerosis https://pubmed.ncbi.nlm.nih.gov/37437240 STUDY: Prevalence and Risk of Developing Sexual Dysfunction in Women with Multiple Sclerosis (MS): A Systematic Review and Meta-Analysis https://bmcwomenshealth.biomedcentral.com/articles/10.1186/s12905-023-02501-1 RealTalk MS Episode 255: Aging With MS with Dr. John Corboy https://realtalkms.com/255 Crush MS https://crushms.org If you're living with MS, email info@crushms.org for special deep discount code Crush MS 10% Discount Code for everyone is Realtalkmsdiscount (case sensitive) Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 308 Guest: Dr. Nora Fritz Privacy Policy

Learning to effectively manage stress and anxiety is important for everyone. And if you're living with the unpredictability of MS, it may be doubly important.  Joining me to discuss the impact that stress and anxiety can have on your physical and mental health, along with strategies you can use to manage the stress and anxiety in your life, is Dr. Bree Wannamaker. Dr. Wannamaker lives with MS, and she's a Licensed Professional Counselor and Chief Therapist & Consultant in her practice, Just Us Counseling and Consulting, LLC. We're also sharing the results of a study that compared patient outcomes among people with relapsing-remitting MS who were started on a high-efficacy disease-modifying therapy and people with relapsing-remitting MS who were started on a lower efficacy DMT. We'll tell you about remyelination research that led to a surprising conclusion. We'll share the details about Crush MS, an amazing event in Napa Valley that brings together wine, food, and music to raise money for MS research. I hope I'll see you there! And if you're on Ocrevus, we have some potentially time-saving news to share with you! We have a lot to talk about! Are you ready for RealTalk MS??! This Week: Managing stress and anxiety if you're living with MS  :22 A research team analyzed the outcomes for people with MS who were started on a high-efficacy DMT and compared them to the outcomes for people with MS who were started on a lower-efficacy DMT  1:18 An experimental therapy promoted remyelination by upending the commonly held scientific hypothesis about myelin repair  6:53 I'll be at Crush MS! Will I see you there?   9:53 An Ocrevus treatment in just 10 minutes?   11:31 Dr. Bree Wannamaker shares strategies for managing stress and anxiety  13:33 Share this episode  33:20 Have you downloaded the free RealTalk MS app???  33:41 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/307 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com STUDY: Does Initial High-Efficacy Therapy in Multiple Sclerosis Surpass Escalation Treatment Strategy? A Comparison of Patients with Relapsing-Remitting Multiple Sclerosis in the Czech and Swedish National Multiple Sclerosis Registries https://sciencedirect.com/science/article/abs/pii/S221103482300305X TREAT-MS Clinical Trial https://treat-mstrial.org Crush MS https://crushms.org If you're living with MS, email info@crushms.org for special deep discount code Crush MS 10% Discount Code for everyone is Realtalkmsdiscount (case sensitive) Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 307 Guest: Dr. Bree Wannamaker Privacy Policy

In this episode, Justin Loizos unveils a unique part of his journey with MS - delivering a speech at Roche Canada, the world's largest biotech company, on World MS Day. He shares the inspiration, insights, and experiences that emerged from this special occasion, not forgetting the beautiful facility and the warm, professional team that made the day even more remarkable. Show Notes: • Justin's speech at Roche Canada and the significance of World MS Day. • Roche's impactful role in Justin's journey with MS, specifically with their revolutionary medication, Ocrevus. • The decision to use a walker on the day of the speech and the challenges, as well as the authenticity it added to his message. • A look into the beautiful Roche facility, the warm reception, and the pleasure of meeting his team in person for the first time. • Reflections on the impact of the experience on Justin's advocacy work and his connection to the MS community. • Closing remarks and a heartfelt thank you to listeners for their continued support. Remember to subscribe and share our podcast. Together, we can make a difference in the lives of those with MS.The Just MS (Multiple Sclerosis) Show, w host Justin Loizos, is a podcast that connects, educates and tries to uplift others living with multiple sclerosis. It provides real-life stories, interviews, and information about DMTs (disease modification therapies) and updates on research developments.www.justmultiplesclerosis.com

In this episode of The Just M.S. Show, host Justin Loizos brings you a roundup of the previous week's news and research in the world of multiple sclerosis. From the impact of diet and physical activity on MS symptoms to the latest developments in treatment options, this episode is packed with valuable insights. Justin also discusses the importance of community support and awareness, especially as we approach MS Day. Tune in to stay informed and empowered in your MS journey. Links: https://www.neurologylive.com/view/research-identifies-links-between-pro-inflammatory-diets-increased-relapses-lesion-multiple-sclerosishttps://www.neurologylive.com/view/researchers-identify-association-between-physical-activity-spinal-cord-gray-matter-area-multiple-sclerosishttps://adventist.news/news/multiple-sclerosis-research-clinic-launches-at-sydney-adventist-hospitalhttps://medicalxpress.com/news/2023-05-life-stressors-contribute-multiple-sclerosis.htmlhttps://www.pharmacytimes.com/view/study-ofatumumab-slows-worsening-disability-in-patients-with-relapsing-multiple-sclerosishttps://www.news-medical.net/news/20230526/Tracking-changes-in-blood-vessels-may-hold-clues-to-early-detection-of-neurodegenerative-diseases.aspxhttps://www.eurekalert.org/news-releases/990659The Just MS (Multiple Sclerosis) Show, w host Justin Loizos, is a podcast that connects, educates and tries to uplift others living with multiple sclerosis. It provides real-life stories, interviews, and information about DMTs (disease modification therapies) and updates on research developments.www.justmultiplesclerosis.com

In this episode of The Just M.S. Show, Justin Loizos, our host, shares his personal experiences on navigating life with multiple sclerosis. Join him as he reflects on his journey from the beginning of his treatment with Ocrevus, through to the present day where he continues to celebrate the victory of no new lesions.After a long period of lockdown due to the pandemic, Justin recounts his first doctor's visit at the brand new world-class MS clinic at St. Mike's. Listen as he paints a vivid picture of this inspiring facility, dedicated to providing resources for the MS community.Yet, life with MS is not without its challenges. Justin opens up about his recent struggles with mobility, a common issue faced by many people living with MS. Despite the setbacks, he remains resilient and hopeful, emphasizing the importance of perseverance in the face of adversity.Join us for this heartfelt episode that illuminates the realities of living with MS, while also highlighting the triumphs and resilience of our MS community.The Just MS (Multiple Sclerosis) Show, w host Justin Loizos, is a podcast that connects, educates and tries to uplift others living with multiple sclerosis. It provides real-life stories, interviews, and information about DMTs (disease modification therapies) and updates on research developments.www.justmultiplesclerosis.com

MedLink Neurology Podcast is delighted to feature selected episodes from BrainWaves, courtesy of James E Siegler MD, its originator and host. BrainWaves is an academic audio podcast whose mission is to educate medical providers through clinical cases and topical reviews in neurology, medicine, and the humanities, and episodes originally aired from 2016 to 2021. Originally released: July 11, 2019 In this week's Teaching through Clinical Cases, Dr. Olga Rosenveld Thon (Drexel) walks us through the challenging management decisions that emerge in the care of women with demyelinating disease. Why are women prone to multiple sclerosis? How do pregnancy, breastfeeding, and menopause influence the disease course--and should these events alter the course of their therapy? Produced by James E Siegler and Olga Thon. Music courtesy of Cellophane Sam, Chris Zabriskie, Jon Watts, Kai Engel, and Lee Rosevere. Sound effects by Mike Koenig and Daniel Simion. BrainWaves' podcasts and online content are intended for medical education only and should not be used for clinical decision-making. Be sure to follow us on Twitter @brainwavesaudio for the latest updates to the podcast. DISCLOSURESDr. Rosenveld Thon reports relevant financial interests in Ocrevus, as a consultant. REFERENCESBove R, Chitnis T, Houtchens M. Menopause in multiple sclerosis: therapeutic considerations. J Neurol 2014;261(7):1257-68. PMID 24101131 Bove R, Chitnis T. The role of gender and sex hormones in determining the onset and outcome of multiple sclerosis. Mult Scler 2014;20(5):520-6. PMID 24561324 Bove R. Women's issues in multiple sclerosis. Semin Neurol 2016;36(2):154-62. PMID 27116722 Confavreux C, Hutchinson M, Hours MM, Cortinovis-Tourniaire P, Moreau T. Rate of pregnancy-related relapse in multiple sclerosis. Pregnancy in Multiple Sclerosis Group. N Engl J Med 1998;339(5):285-91. PMID 9682040 Correale J, Farez MF, Ysrraelit MC. Increase in multiple sclerosis activity after assisted reproduction technology. Ann Neurol 2012;72(5):682-94. PMID 23034952 Michel L, Foucher Y, Vukusic S, et al. Increased risk of multiple sclerosis relapse after in vitro fertilisation. J Neurol Neurosurg Psychiatry 2012;83(8):796-802. PMID 22693287 Nielsen NM, Westergaard T, Rostgaard K, et al. Familial risk of multiple sclerosis: a nationwide cohort study. Am J Epidemiol 2005;162(8):774-8. PMID 16120694 Ramagopalan SV, Dobson R, Meier UC, Giovannoni G. Multiple sclerosis: risk factors, prodromes, and potential causal pathways. Lancet Neurol 2010;9(7):727-39. PMID 20610348 Rankin K, Bove R. Caring for women with multiple sclerosis across the lifespan. Curr Neurol Neurosci Rep 2018;18(7):36. PMID 29789964  We believe that the principles expressed or implied in the podcast remain valid, but certain details may be superseded by evolving knowledge since the episode's original release date.

I'm super excited about these next two episodes! Of course, any episode that has to do with HSCT (hematopoietic stem cell transplant) is super important to me. For the last 10 years, I've been a vocal advocate for HSCT. Screaming about it from the top of my lungs through social media, blogging, and to anyone who would listen or inquired. As you may or may not know, my co-host, Jodi, and I have both received HSCT for our MS. I had mine in Russia 10 years ago, and Jodi in Mexico in 2018. So when Dr. Richard Burt's team reached out to us to discuss all things HSCT, as well as his recently released book, Everyday Miracles, that puts forth, in lay terms, his long road to accomplishing his goals, we were beyond open to having the opportunity to ask all the questions we ever wanted to know. Those questions include the reasoning behind his choices for inclusion and exclusion of certain patients for this treatment...in particular, MS patients. Questions like…Which MS patients does this treatment work for? Who doesn't it work for? and why? So who is Dr Richard Burt? He's the determined and innovative physician who pioneered the use of HSCT in the US. Within the HSCT community, he's considered the Godfather of HSCT, and yes, in case you're wondering, he IS the Dr. who treated actress Selma Blair. For the last 35 years, with laser focus and blinders on to block out any peripheral static from naysayers, Dr. Burt has been quietly and methodically raging against the machine that is today's medical system. Armed with the knowledge he gained while treating patients with leukemia with HSCT, he felt certain it could potentially halt the progression of certain autoimmune diseases and in many cases, reverse symptoms. So he plowed forward with a mission to prove his hypothesis. But it wouldn't happen overnight. There were randomized trials, hundreds of patients, many diseases and, in the end, life-changing success stories. Dr. Burt was the first doctor in the US to give hope to patients with MS, Lupus, Crohn's, Stiff Person Syndrome and CIDP, when in the past they'd grappled with a life filled with a long list of ineffective drugs and certain disease progression. To be clear, just because he was butting up against systemic red tape here in the US, doesn't mean he wasn't becoming a highly decorated peer by the international medical community and beyond. His list of awards granted by esteemed medical organizations is lengthy and impressive. I mean seriously, how many doctors do you know who've been presented with the "keys to the Vatican" in Vatican City, Rome? He was even recognized by Science illustrated for accomplishing one of the top 10 medical breakthroughs for the next 10 years. And, the forward for his book was written by the Dalai Lama! Yes! Dr. Burt has got the juice! So much so that we had to squeeze it out in two full episodes. Both of which are packed with answers from pointed questions that you won't find anywhere else. Asked by HSCT veterans who, for over a decade, have been privy to all the insider speculation regarding Dr. Burt's methodology. Like why he will or won't treat certain MS patients, why he uses certain drugs in his protocol, and what he considers a successful HSCT.  It's time to dig in and peel back the curtain on HSCT with Dr. Richard Burt. EPISODE NOTES: - Dr. Burt's book, Everyday Miracles - Making HSCT easy to understand - 54 patient stories - Being a patient-oriented physician - Insurance coverage - How HSCT works - The mistake of thinking that the stem cells are what resets your immune system - Whose stem cells are used? - Myeloablative or non-myeloablative HSCT…which one does Dr. Burt prefer for AI disease - HSCT for cancer vs. an autoimmune disease - Stronger protocols don't always mean better - A one-time treatment - How long will it last? - The important role of measuring brain atrophy in MS progression - The colonialistic attitude of doctors toward patients - The risks associated with a myeloablative protocol - What is the definition of a successful HSCT  - The difference between active and non-active SPMS - Neurodegeneration…it's tricky - Ocrevus, neurodegeneration and progression to SPMS - Your immune system is your ally - MS drugs are toxins - Why he used ATG as part of his HSCT protocol   LINKS: This episode on YouTube: https://youtu.be/ezjhqHtYA8Y Dr. Burt's book, EVERYDAY MIRACLES: https://www.amazon.com/Everyday-Miracles-Scleroderma-Autoimmune-Hematopoietic/dp/1637631251 Dr. Burt's website:  https://astemcelljourney.com/about/drrichardburt/ Email to apply for HSCT with Dr. Burt: BURTRRMSTrial@scrippshealth.org THE MS GYM: Website YouTube Facebook Instagram BROOKE SLICK: Instagram

Aflevering 8 gaat over ‘n bijzonder goed trio: m'n medicatie Ocrevus, acupunctuur en ikzelf. Ik begin met de medicatie. Liever had ik het niet nodig, maar ik voel me nu toch vooral heel dankbaar dat Ocrevus bestaat en helpt. M'n MS is sinds juli 2022 rustig en stabiel. Naast medicatie maak ik ook graag gebruik van de kennis en kunde uit de Chinese geneeskunde: acupunctuur. Zelf zorg ik voor plezier, mezelf helen, goede en zoveel mogelijk ontstekingsremmende voeding, beweging, ontspanning, slaap, rust en voldoende mentale uitdaging. En ik neem elke 6 weken een cranio sacraal massage. Dit is mijn complete behandelplan, maar ik noem het liever leefstijl. En waar ‘t net na de diagnose allemaal heel overweldigend en beangstigend voelde qua medicatie, voelt het nu of we het echt samen doen: ik, Ocrevus en de naaldjes. Voelt goed

Welcome to Living Well with MS. In this episode, Geoff meets with Kathy Chester, a certified fitness trainer and podcaster with MS.   Keep reading for the key episode takeaways and Kathy's bio.  Make sure you sign up to our newsletter to hear our latest tips and news about living a full and happy life with MS. And if you're new to Overcoming MS, visit our introductory page to find out more about how we support people with MS.  Bio:  Kathy Chester hosts the Move it or Lose it Podcast and leads Women Who Disrupt MS, a support group facilitated through the Multiple Sclerosis Foundation (MSF). She is the owner and lead trainer of Disrupt Fitness Gym.  Fitness has always played a big role in her life. She became an aerobics and boot camp coach and went on to manage various studios. In 2015, she established Disrupt Fitness Gym: a program combining circuit and interval training to create the most efficient workout.  Kathy was diagnosed with Multiple Sclerosis more than 20 years ago. Her MS symptoms began with numb hands and feet, migraines, and cognitive issues. The DMT's and MS treatments she has tried include Avonex, steroids, chemotherapy, Tysabri, and now, Ocrevus. Taking these medications further confirmed her belief that movement and exercise is crucial for optimal health, strength, and mobility.  Her expertise has allowed her to train people with MS all over the world. She developed a new program called DMAT (Disrupt Move and Transform). DMAT targets joints and muscles to slow down advancement of the disease. The program is based on a one-on-one or group session. Both standing and seated moves are demonstrated and trained in real-time. The results are increased strength and confidence in everyday movements which leads to more independence, and therefore, a better quality of life.  Selected Key Takeaways  Understanding exercise to improve MS symptoms  As the MS changed, and as I grew in my knowledge and more certifications, then I was able to understand what moves needed to be done to strengthen our bodies, our legs, the foot drop, keeping the MS hug away, and things like that. So I started working with the MS and the autoimmune world.  The benefits of live exercise classes – giving feedback I also do it [exercise classes] via Zoom, where there could be seven to 10 people, and I'm showing seated moves and standing moves. I'm able to watch and say 'Hold on. Stop that. Let's do this instead.' So I can watch [and] ask, 'Is it cool enough where you are? Do you have water?' And I think that's a personal touch that I'm able to give.  Producing a podcast   I wanted to do a podcast for a long time. The gym just took so much of me. I listened to several different podcasts for years and tried to get my [own] idea of what I wanted it to be. I decided I wanted to have guests on with autoimmune diseases, a lot of them have MS. And then to get something that is inspirational, something that they do, and then have a doctor come on and really talk about the issue.  Related Links:  Try an Overcoming MS exercise video  Find out more about Kathy's Disrupt Move and Transform exercise program   Listen to Kathy's podcast Move It or Lose It   Don't miss out:  Subscribe to this podcast and never miss an episode. You can catch any episode of Living Well with MS here or on your favourite podcast listening app. If you like Living Well with MS, please leave a 5-star review on Apple Podcasts or wherever you tune into the show. Feel free to share your comments and suggestions for future guests and episode topics by emailing podcast@overcomingms.org.  Make sure you sign up to our newsletter to hear our latest tips and news about living a full and happy life with MS.  If you enjoy this podcast and want to support the ongoing work of Overcoming MS, you can leave a donation here. 

Multiple Sclerosis News Today's multimedia associate, Price Wooldridge, reads about a study that shows how new myelin production may be less efficient in late-onset multiple sclerosis patients, which could underlie more severe disease progression. He also reads “MS News That Caught My Eye Last Week: ECTRIMS, Ocrevus, Kesimpta, Epstein-Barr, DMTs” by Ed Tobias, from his column “The MS Wire”. =================================== Are you interested in learning more about multiple sclerosis? If so, please visit: https://multiplesclerosisnewstoday.com/ ===================================== To join in on conversations regarding multiple sclerosis, please visit: https://multiplesclerosisnewstoday.com/forums/

When we talk about managing MS on this podcast, we're usually talking about treatments based upon traditional Western medicine. But there are also complementary therapies that have been shown to improve MS symptoms. And acupuncture is one of those complementary therapies that's been shown to be effective in treating pain, spasticity, numbness or tingling, bladder problems, and depression.  Joining me to talk about the therapeutic effects of acupuncture in treating MS symptoms are Jennifer Mohr-Boscaino and Ken Bandler. Jennifer is a licensed acupuncturist and the founder of Precious Health Acupuncture in New York, and Ken is a public relations executive who lives with MS and receives acupuncture treatment for his MS symptoms. We're also talking about how a large MS clinical trial has been able to increase minority participation, and how other MS research studies may be able to learn from this example. We'll tell you about a study that showed the benefit of COVID-19 mRNA vaccinations and boosters for people living with MS who are on b-cell depleting therapies, like Ocrevus. And if you're an MS caregiver, or you know one, I'm asking for a favor that will cost you just 5 minutes of your time. We have a lot to talk about! Are you ready for RealTalk MS??! Next Week: RealTalk MS recorded LIVE at this week's National MS Society 2022 Leadership Conference  :22 Today: It's Election Day in the U.S. Please vote!  :41 Your Question Answered: How Big is the ECTRIMS Congress?  1:30 This Week: Acupuncture and MS  3:01 Pragmatic trials may increase minority participation in MS research  4:03 Research supports COVID-19 mRNA vaccination and booster for people with MS on Ocrevus   7:10 If you're an MS caregiver, or you know one, please help me out  10:26 Jennifer Mohr-Boscaino and Ken Bandler discuss the benefits of acupuncture for managing some MS symptoms 14:04 Share this episode  29:02 Download the RealTalk MS app for your iOS or Android device   29:22 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/271 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Take the iConquer MS Caregiver Survey https://realtalkms.com/caregiver National MS Society: Your Right to Vote and Polling Place Accessibility https://nationalmssociety.org/Get-Involved/Advocate-for-Change/Take-Action/Voter-Info DELIVER-MS Study https://deliver-ms.com Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 271 Guest: Steffany Stern and Judy Wilson Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

Multiple Sclerosis News Today's multimedia associate, Price Wooldridge, reads a news article on how fertility treatments do not appear to significantly increase the risk of relapse in women with multiple sclerosis. He also reads a news article on how treatment with Ocrevus before or during pregnancy does not seem to increase the risk of major pregnancy or infant complications. =================================== Are you interested in learning more about multiple sclerosis? If so, please visit: https://multiplesclerosisnewstoday.com/ ===================================== To join in on conversations regarding multiple sclerosis, please visit: https://multiplesclerosisnewstoday.com/forums/

Multiple Sclerosis News Today's multimedia associate, Price Wooldridge, reads a news article about a study showing that when MS patients stop their disease-modifying treatment, the risk of relapses and disease activity on MRI scans is higher among patients who have RRMS. He also reads an article on how Ocrevus safely and effectively reduced disease activity in people with early-stage relapsing-remitting multiple sclerosis. =================================== Are you interested in learning more about multiple sclerosis? If so, please visit: https://multiplesclerosisnewstoday.com/ ===================================== To join in on conversations regarding multiple sclerosis, please visit: https://multiplesclerosisnewstoday.com/forums/

Multiple Sclerosis News Today's multimedia associate, Price Wooldridge, reads a news article reporting that an interval dosing of Ocrevus of one month or longer was linked to a fivefold higher risk of MRI-based disease activity. He also reads “Researchers Hit a Bump on the BTK Inhibitor Road” by Ed Tobias, from his column "The MS Wire". =================================== Are you interested in learning more about multiple sclerosis? If so, please visit: https://multiplesclerosisnewstoday.com/ ===================================== To join in on conversations regarding multiple sclerosis, please visit: https://multiplesclerosisnewstoday.com/forums/

Multiple Sclerosis News Today's multimedia associate, Price Wooldridge, discusses how two years of Ocrevus treatment outperformed Rebif at preventing myelin loss in people with relapsing forms of multiple sclerosis. He also reads “Dreams, Diagnoses, and Disclosures: When to Tell Others About MS” by Ed Tobias, from his column “The MS Wire”. =================================== Are you interested in learning more about multiple sclerosis? If so, please visit: https://multiplesclerosisnewstoday.com/ ===================================== To join in on conversations regarding multiple sclerosis, please visit: https://multiplesclerosisnewstoday.com/forums/

Multiple Sclerosis News Today's multimedia associate, Price Wooldridge reads an article about how fully vaccinated MS patients who are taking Ocrevus or Gilenya have a higher risk of COVID-19 infection than those on other therapies. He also reads “While Living With MS, Good Planning Is Key to Avoiding Chaos”, a column from Beth Ullah's “ Through the Looking Glass.” =================================== Are you interested in learning more about multiple sclerosis? If so, please visit: https://multiplesclerosisnewstoday.com/ ===================================== To join in on conversations regarding multiple sclerosis, please visit: https://multiplesclerosisnewstoday.com/forums/

These days it seems most are getting Ocrevus infusions twice a year. It is one of the most common MS infusion drugs on the market. Tara & Bobie have both been on this drug for years. What do they do to prepare? What do they bring with to pass the time? What's a 4-6hr appointment look like? What are their side effects day of and up to a week after? Let's find out all the details!! --- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app

In the latest episode of The Just MS Show, our host Justin discusses his experience taking Ocrelizumab (Ocrevus), the drug that has become a game-changing treatment for people with relapsing and progressive types of MS. Justin received his first dose in November 2020 and will share his experiences, as well as his opinions on how this drug could change the course of MS.I'm happy I was able to record this in one shot. I will make mistakes but in trying hard and the show will improve as we go... Thanks a lot for your support! Corrections: • Copoxone is administered once every three days and not every day;Links:Hadassah Medical Organization Announces Breakthrough in Stem Cell Treatment for MS and ALS:https://www.hadassah.org/press-release/hadassah-medical-organization-announces-breakthrough-in-stem-cell-treatment-for-ms-and-alsDr.Aaron Boster - How Ocrevus works in Multiple Sclerosis:https://www.youtube.com/watch?v=xROT3Uk7Z3UMore information about  Ocrevus can be found here:https://www.ocrevus.com/The JustMS podcast was created as a resource for Multiple Sclerosis (MS) patients, their families and friends. Our goal is to give people who are newly diagnosed better insight into what to expect and how to best cope with the process, which can be overwhelming and confusing. We recognize that MS is different for everyone, so we aim to provide a steady flow of information that covers a variety of topics on living with MS in today's world.

I'm giving info About getting my IV treatment for multiple sclerosis in the at of 2021 . I had to wait a while after getting vaccinated. Also ,I'm describing how my body felt being for quite a bit of time before and after --- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app --- Send in a voice message: https://anchor.fm/msconnectlife/message Support this podcast: https://anchor.fm/msconnectlife/support

Telling the Process of me getting my IV treatment ocrevus and what to expect during Covid. --- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app --- Send in a voice message: https://anchor.fm/msconnectlife/message Support this podcast: https://anchor.fm/msconnectlife/support

Heute interviewe ich den MS-Patienten und gleichnamigen Autoren von Alex Blog, der auch aufgrund der Erkrankung zu sich selbst gefunden hat.   Hier geht es zum Blogbeitrag: https://ms-perspektive.de/interview-mit-dem-ms-patienten-und-autoren-von-alex-blog   Diesmal habe ich Alex zu Gast im Interview. Er erhielt 2014 die Diagnose Multiple Sklerose, ca. 12 Jahre nach einem ersten deutlichen Schub, einer halbseitigen Lähmung. Wir sprechen über seine Texte, die bei der DMSG Niedersachen auf Alex' Blog erschienen sind. Sie decken insgesamt vier Jahre ab, in denen er seinen Weg mit der Erkrankung und zu sich selbst gefunden hat. Heute ist Alex sehr reflektiert und hat sich gelöst davon immer etwas zu „müssen“ hin zu „ich darf“. Auf Alex' Blog lernst Du die Geschichte eines Mannes von tausend Gesichtern der MS kennen. Und ob diese Geschichte interessant für Dich ist, findest Du im Beitrag heraus.   Inhaltsverzeichnis Vorstellung Diagnose und aktueller Status Alex' Blog Tipps Wünsche und Ziele Blitzlicht-Runde Verabschiedung Vorstellung Ich bin Alexander Gottschalk, 39 Jahre alt und stamme ursprünglich aus Magdeburg. Beruflich bin ich nach Hannover gegangen und heute sehr aktiv bei der DMSG Niedersachsen. Mittlerweile bin ich Autor von dem Blog: „Ich, mein Freund. Mein Weg zu mir selbst unter erschwerten Bedingungen.“ Im Blog geht es um meinen Weg. Wie ich gelernt habe mich selbst neu wahrzunehmen und mit der MS anzufreunden und wie ich mir neue Sichtweisen auf die Welt und die Menschen erarbeitet habe. Die MS hat einen unglaublichen Entwicklungsschub bei mir ausgelöst und mir ermöglicht, mich selbst neu zu entdecken, nachdem ich viele, viele vermeintliche Verluste hinnehmen musste. In den Artikeln arbeite ich mit vielen Sprachbildern, die ich aufgrund meiner Erfahrungen hoffentlich auch für andere verständlich in Szene setzen kann. Das Schreiben über meine Erfahrungen hilft mir, das Fortschreiten der Krankheit selbst zu verarbeiten. Ich beginne dabei natürlich am Anfang, als es mir sehr schlecht ging bzw. ich mir Fragen stellte, die ich nicht befriedigend beantworten konnte. Das Ganze entwickelt sich vor allem durch die Unterstützung meiner Therapeuten und meinem Durst nach Wissen. Es geht darum sich nicht selbst aufzugeben, Möglichkeiten in diesem jungfräulichen Neuland der Krankheit zu entdecken, die bisherige Erfahrungen nicht in der Lage waren, abzudecken. Diagnose und aktueller Status Seit wann hast du die Diagnose und was war der Anlass für die Diagnose? Die endgültige Diagnose erhielt ich 2014, als die Fatigue überhandnahm, und ich mich immer mehr in mich selbst zurückzog. Wie hast Du die Diagnose aufgefasst? Und wie war es für Dein Umfeld? Ich war froh, dem an mir zerrenden Kind einen Namen geben zu können, hatte auch Unterstützung von meiner damaligen Frau. Von Anfang bin ich sehr offen damit umgegangen. Mein Arbeitgeber und meine Familie waren natürlich betroffen. Allerdings stieß ich nur selten auf Verständnis. Es fiel mir damals sehr schwer, meine Eigenartigkeiten zu erklären. Ich wusste ja selber noch nicht sehr viel über die Krankheit und schon gar nicht über mich selbst. Wie geht es Dir aktuell mit der MS? So lala, es gibt solche und solche Tage. Ich bin froh, dass ich mich auf die Suche nach mir selbst begeben habe, somit kann ich sehr viel besser mit meinen Körperlichkeiten und Erschöpfungszuständen umgehen. Jede Krankheit beginnt bekanntlich im Kopf und durch meine Beschäftigung mit mir selbst ist die MS nicht mehr so sehr wirksam hinsichtlich Selbstmitleid und Rückzug. Es gibt natürlich Tage, da haben die Einschränkungen, speziell die Fatigue, prägende und einnehmende Qualität. Aber das kann ich mittlerweile zulassen, ohne daran zu verzweifeln. Welche Behandlung wurde Dir zu Beginn der Diagnose empfohlen und bist Du der Empfehlung gefolgt? Tecfidera, ja ich bin der Empfehlung gefolgt. Ich bin selber kein Arzt und trotz aller vergangenen Widrigkeiten habe ich immer ein großes Urvertrauen gegenüber Fachleuten gehabt und habe es immer noch. Die Frage ist ja auch, was wäre, wenn ich keine Medikamente nehmen würde, wie würde es dir dann jetzt gehen? Hast Du im Laufe der Zeit Erfahrungen mit verschiedenen verlaufsmodifizierenden Therapien gemacht? Ja habe ich, Gilenya und aktuell Ocrevus, muss aber dazu sagen, dass ich diese Medikamente gar nicht merke, so soll das wohl auch sein, nur bei Tecfidera am Anfang hatte ich die bekannten Flushs. Warst Du bei einer oder mehreren Reha-Maßnahmen wegen der MS? Ja, ich habe mittlerweile zwei Rehas gemacht. Nach der Ersten wurde ich gefragt, ob ich denn Therapeut oder Patient wäre. Das hat also wirklich was gebracht! Na ja und nach der zweiten war die Krankheit bereits so fortgeschritten, dass ich danach zum Rentner wurde. Glücklicherweise, darf ich sagen. Welche symptomatischen Therapieangebote nutzt Du und wie zufrieden bist Du damit? Physiotherapie, Ergotherapie, Psychotherapie, Logotherapie und zu Hause mache ich auch noch ein bisschen. Habe zwischenzeitlich auch mal Funktionstraining gemacht, aber das wurde mir ziemlich schnell einfach zu anstrengend. Danach war immer der ganze Tag vorbei weil Akku leer. Die ersten vier Sachen reichen mir durchaus, machen Spaß, geben ein wenig Struktur, sind aber auch anspruchsvoll Besonders die Psychotherapie will ich nicht mehr missen, das hilft mir meine Depression aufzulösen und mich nun nicht weiter geistig und substanziell selbst zu vergiften. Wie versuchst Du, auf den Verlauf der MS Einfluss zu nehmen? Indem ich lerne, mit ihr umzugehen. Ich halte nicht viel davon mir viele verschiedene Mittelchen reinzutun und mich an jeden Nahrungsergänzungsstrohhalm zu klammern und zu hoffen. Mich selbst bewusst wahrnehmen und auf mich hören, ist sehr viel mehr wert, finde ich. Hilfe und Hilfsmittel annehmen und entschleunigen. Wenig Stress und öfter Neinsagen hilft ungemein. Alex' Blog Wie kamst Du auf die Idee, Deine Gedanken und Gefühle aufzuschreiben? Als ich meinen Schwerbehindertenausweis beantragt hatte, habe ich einen Widerspruch einlegen müssen, weil ich mit dem Ergebnis des Antrags nicht zufrieden war. Ich hatte damals ursprünglich 30 GdB bekommen, aber auch damals schon fühlte ich mich nicht richtig eingestuft und somit habe ich einen Widerspruch geschrieben. Damit fing alles an und irgendwie, ich weiß nicht genau, habe ich dann immer mal wieder was geschrieben. Ja und dann verselbstständigte sich das und ich musste einfach schreiben, auch weil ich gemerkt habe, dass ich nach jedem Text ruhiger wurde. Welche Rolle spielen die MS und die dazugehörigen Symptome in Deinen Beiträgen auf Alex' Blog? Nun, beides sind natürlich Grundlage für meine Gedanken und Überlegungen. Ich bin beruflich geprägt Probleme zu lösen, so als Speditionskaufmann. Früher waren es Transport und Logistikprobleme. Das hilft mir wirklich sehr, denn irgendwie muss ich ja mit dem, was ich habe, energiesparend umgehen. Jetzt, nach ca. dreieinhalb Jahren habe ich meinen Alltag entsprechend neu reglementiert, eben so dass die MS und deren Symptome nicht allzu sehr im Vordergrund stehen. Waren die Texte von Anfang an für alle lesbar oder wie hat sich das Projekt "Alex' Blog" entwickelt? Nein, es hat eine ganze Weile gedauert, bis ich mich überhaupt einer Selbsthilfegruppe angeschlossen habe, der DMSG. Und die Oberindianer dort gaben mir die Möglichkeit, meine Texte zu veröffentlichen, nachdem sie einige gelesen hatten. Erst gab es nur die Texte an sich, sie wurden gleich veröffentlicht, nachdem ich sie eingereicht habe. Und nun gibt es mittlerweile vertonte Texte, also einige, nicht alle, die nach und nach auf einer neueren professionell erstellten Seite veröffentlicht werden. Daran waren zwei Leute von der DMSG, eine Grafikerin, ein IT'ler, der professionelle Sprecher und natürlich ich beteiligt. Welche Rückmeldungen bekommst Du zu Deinen Texten? Durchweg positive, die ersten Texte sind natürlich ein wenig finster. Da haben die Leute vielleicht aus Verständnislosigkeit nach dem Sinn meiner Unternehmung gesucht. Ich habe überlegt ob ich vielleicht irgendwo in der Mitte meiner Entwicklung anfange. Also mit einem Text und wo man sieht, dass es mit mir bergauf geht. Aber das finstere Vorher gehört eben auch dazu. Bei manchen Texten wurde geweint, bei anderen gelacht und oft blieb das Lachen im Halse stecken. Mir wurde gesagt, dass eine Entwicklung auch in meinem Schreibstil erkennbar ist. Über welchen Zeitraum Deines Lebens erstrecken sich die Texte auf Alex' Blog und hast Du vor ein festes Ende zu setzen? Es beginnt mit meinem Widerspruch gegen das Sozialamt im Februar 2019. Es soll ein festes Ende geben, geplant ist das für dieses Jahr. Wann genau und ob überhaupt, ich mache mir da selbst keine Auflage. Ich lasse mir mittlerweile Zeit beim Schreiben und auch beim Einordnen meiner Erfahrungen. Es ist, glaube ich kein klassischer Blog im Sinne von Tagebuch, sondern ein Erfahrungsbericht, wenn man so will. Schon gar kein Ratgeber, eher eine Sammlung von Geschichten, die zufällig was mit MS zu tun haben. Was haben die Texte mit Dir selbst gemacht? Tja, das klingt jetzt bestimmt irgendwie komisch, aber sie haben mich reifer werden lassen. Gelassener. Ich verfluche mich nicht mehr sondern kokettiere mit meinen vermeintlichen Unzulänglichkeiten, ich nenne sie auch Special Effects. Wie hast Du Dich im Laufe der Zeit verändert und worauf bist Du besonders stolz? Ich bin sehr viel aufmerksamer mir selbst gegenüber geworden. Und auch unsere Mitwelt nehme ich viel differenzierter wahr. Ich schaue auf das, was ist und nicht, was sein sollte oder sein müsste. Am meisten bin ich darauf stolz mich selbst nicht mehr so ernst zu nehmen, fünf auch mal gerade sein lassen zu können und mich selbst nicht mehr so unter Druck zu setzen. Die Erkenntnis, dass ich nicht muss, sondern darf. Tipps Was war dein tiefster Tiefpunkt mit der MS und wie hast du dich wieder empor gekämpft? Ganz klar, meine Scheidung. Der Verlust von Haus und Hof, und die plötzliche Erkenntnis, dass ich nicht mehr so belastbar bin, wie es früher der Fall gewesen ist. Es hat eine Weile gedauert, aber meine Strategie weg von der Lethargie hin zu mehr Spaß war und ist das genaue Hinsehen und Hinfühlen auch und gerade in unangenehmen Situationen. Das schafft Verständnis und Wissen, härtet ein wenig ab, zeigt Möglichkeiten auf und macht vor allem flexibel. Wie lange hat es gedauert bis Du wieder freundlicher auf die Welt schauen konntest? Dezember 2020 bis hin zu Neujahr 2021. Also knapp zwei Jahre nachdem ich mit der Schreiberei angefangen habe, sechs Jahre nach meiner endgültigen Diagnose und 19 Jahre nach meinem ersten Schub bei dem ich als Azubi halbseitig gelähmt war. Ich hatte 11-12 Jahre keine gravierenden Symptome also auch keinen Grund, mich so intensiv mit mir zu beschäftigen. Wünsche und Ziele Gibt es einen großen unerfüllten Wunsch? Na klar! Gesehen und angenommen werden!! Als der Mensch, der ich heute bin. Geborgenheit, Nähe, Zugewandtheit, Trost, eine Freundin. Welche Entwicklung wünschst du Dir im Bereich der MS in den kommenden 5 Jahren? Ich bin generell sehr vorsichtig mit Wünschen. Am Ende kriegt man auch noch, was man sich vorstellt. Natürlich möchte ich, dass ein Mittelchen gegen die MS gefunden wird, welches alle Narben zurückbildet und Symptome verschwinden lässt. Mich irgendwie wieder der werden lässt, der ich mal war. Blitzlicht-Runde Was war der beste Ratschlag, den du jemals erhalten hast? Trau dich und guck mal ein bisschen genauer hin. Wie lautet dein aktuelles Lebensmotto? Da gibt es einige. Wer sich Sorgen macht, leidet zweimal, ist wohl der aktuell Prägnanteste. Und: Das größte Geschenk an die Zukunft ist, der Gegenwart alles zu geben. Mit welcher Person würdest du gern einmal ein Kamingespräch führen und zu welchem Thema? Mit mir selbst vor 20 Jahren. Thema: Was ist das Leben?  Vervollständige den Satz: „Für mich ist die Multiple Sklerose... “ …der Beginn meines zweiten Lebens. Welche Internet-Seite kannst du zum Thema MS empfehlen? Puh, das Forum der Amsel ansonsten die DMSG-Seiten. Ich selbst meide sowas aber und konzentriere mich auf meine Therapien und mich selbst. Welches Buch oder Hörbuch, das du kürzlich gelesen hast, kannst du uns empfehlen und worum geht es darin? Die Brautprinzessin von William Goldman. Das ist ein Märchen für Erwachsene, es geht natürlich um Liebe. Sehr fantasievoll, sprachgewandt und einfach schön. Verabschiedung Hast du einen Tipp, den Du Deinem jüngeren Ich geben würdest, für den Zeitpunkt der Diagnose? Fliehe bloß nicht wieder in irgendwelche Süchte. Such dir gleich Hilfe und stell dich deinen Dämonen. Möchtest du den Hörerinnen und Hörern noch etwas mit auf dem Weg geben? Das Gleiche, was ich mir selber sagen würde, steck den Kopf nicht in den Sand. Du kriegst alle Hilfe, die Du willst, wenn Du es zulässt. Und vor allem, du bist nicht allein! Wo findet man dich im Internet? Bei der DMSG Niedersachsen gibt es eine Sparte „junge DMSG“. Da ist Alex‘ Blog zu finden.   Vielen Dank, liebe für Deinen offenen Einblicke, gerade auch in die schweren und dunklen Seiten Deines Lebens und toll, wie Du es geschafft hast Dich wieder herauszukämpfen. Weiterhin alles Gute auf Deinem Weg. Bis bald und mach das beste aus Deinem Leben, Nele Mehr Informationen und positive Gedanken erhältst Du in meinem kostenlosen Newsletter. Hier findest Du eine Übersicht zu allen bisher interviewten MS-Patienten.

Multiple Sclerosis News Today's multimedia associate, Price Wooldridge, reads a news article about how 75% of SPMS and PPMS patients in the CONSONANCE trial showed no evidence of disease progression after a year of Ocrevus treatment. He also reads “Old Friends, Broken Chairs, UTI Admissions, and Redemption”, a column by John Connor. =================================== Are you interested in learning more about multiple sclerosis? If so, please visit: https://multiplesclerosisnewstoday.com/ ===================================== To join in on conversations regarding multiple sclerosis, please visit: https://multiplesclerosisnewstoday.com/forums/

Episode 385 Comic Book talk about Ash vs the Army of Darkness #1, DC vs Vampires #6, the Lethal Foes of Spider-Man #2, Married With Children flashback special #2, Married with Children Quantum Quartet #2, Spawn #328, Vincent Price Nightwatch. Multiple Sclerosis Health Talk about Ocrevus, MS Relapse, Low Impact Cardio Exercises, Protein Sources for Vegetarians and Vegans, Yoga Poses and other stuff with health and MS. Send comments, questions and tips to kevintheduckpool@gmail.com please help us out by rating and reviewing us and telling a friend. Also check out audio and video versions of Crimson Cowl Comic Club & Under the Cowl podcasts. A fun variety of great people talk comic books, entertainment or whatever and you can see or hear me on many episodes of those podcasts as well with many more great episodes to come out in the future. --- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app --- Send in a voice message: https://anchor.fm/kevin-kleinhans/message Support this podcast: https://anchor.fm/kevin-kleinhans/support

Multiple Sclerosis News Today's multimedia associate, Price Wooldridge, discusses how a study found no increased risks for women with MS or their babies after exposure to Ocrevus before or during pregnancy. He also reads an article about how autologous hematopoietic stem cell transplant, despite risks, may be a viable treatment option for some MS patients. =================================== Are you interested in learning more about multiple sclerosis? If so, please visit: https://multiplesclerosisnewstoday.com/ ===================================== To join in on conversations regarding multiple sclerosis, please visit: https://multiplesclerosisnewstoday.com/forums/

Multiple Sclerosis News Today's multimedia associate, Price Wooldridge, reads an article about how one year of Ocrevus (ocrelizumab) treatment does not increase the risk of a rare brain infection known as PML in people with MS, a study suggests. Plus, Price reads the column by John Connor, Fall Down, Get Up Again, “On the Healing Powers of THC”. =================================== Are you interested in learning more about multiple sclerosis? If so, please visit: https://multiplesclerosisnewstoday.com/ ===================================== To join in on conversations regarding multiple sclerosis, please visit: https://multiplesclerosisnewstoday.com/forums/

Prof. Heesen erklärt, wie die Stammzelltherapie abläuft, welche Chancen und Risiken damit einhergehen und wer an der Studie teilnehmen kann. In Folge 101 vom Podcast steht die Stammzelltherapie für MS-Patienten im Fokus. Prof. Christoph Heesen vom UKE Hamburg hat bereits einige Erfahrungen mit der Therapieform gesammelt und gibt uns einen umfassenden Einblick in Ablauf, Chancen und Risiken der Behandlung. Er erläutert die Rahmenbedingungen der Studie, die frisch angelaufen ist und für wen sie in Frage kommt. Ich habe versucht die Antworten von Prof. Heesen auf meine Fragen in Textform bestmöglich wiederzugeben. Vorstellung Prof. Dr. med. Christoph Heesen ist Oberarzt & Leiter der MS-Ambulanz am UKE Hamburg und ausgebildeter Facharzt für Neurologie.  Wichtigste Stationen bis zur jetzigen Position? Ich habe Medizin in Marburg und Kiel studiert. Anschließend war ich ein Jahr klinisch tätig in Bremen. Es folgte ein kurzer Ausflug nach London. In meiner Doktorarbeit ging es um Autoimmunerkrankungen. Zum Start in den Klinikalltag kamen gerade die ersten MS-Therapien auf den Markt. Seitdem beschäftige ich mich auch mit den kritischen Kommunikation um die Therapien herum und mit dem Therapieziel der Behandlung. Persönliche Motivation für Ihren Beruf? Faszination der Neurologie und Immunologie. Im Studium kam dann der Bereich der Psychoneuroimmunologie dazu. Bis heute ist das Interesse groß zu verstehen, wie psychischer Stress auf die Multiple Sklerose wirkt und wie man im Umkehrschluss Patienten dabei helfen kann, diesen negativen Einfluss auf die Erkrankung zu reduzieren. Stammzelltherapie Wann macht eine Stammzelltherapie bei MS-Patienten Sinn? Für wen kommt sie in Frage? Die Stammzelltherapie ist ein Verfahren, das für hoch-aggressive Verläufe geeignet ist. Also für eine hochaktive schubförmige MS mit vielen Schüben im Jahr, bleibenden Beeinträchtigungen, einem jungen Lebensalter und einer kurzen Krankheitsdauer der Patienten. Lebensalter idealerweise unter 40 Jahren. Krankheitsdauer unter zehn Jahren. Mit drei Schüben im Jahr. Mit einer Beeinträchtigung nach zwei bis drei Jahren, dass man nicht mehr unbegrenzt gehen kann. Auch progrediente Verläufe kommen in Fragen, falls sie noch nicht zu fortgeschritten sind. Wichtig: Die verabreichten Stammzellen sorgen für einen Neustart des Immunsystems. Sie können weder das Gehirn reparieren noch Nerven wieder aussprießen lassen. Man zerstört das komplette Immunsystem, um es anschließend wieder neu aufzubauen. Damit verschwindet auch das komplette immunologische Gedächtnis. Impfungen müssen neu gegeben werden. In späteren Stadien der Erkrankung, wo Entzündungen nicht mehr so wichtig sind, sondern es um Folgeschäden der zerstörten Nerven geht und Degeneration stellt diese Art der Behandlung nur noch ein Risiko dar und kann keinen Nutzen mehr bieten. Wie läuft eine Stammzellentherapie bei MS-Patienten ab? Es gibt eine autologe und eine allogene Stammzelltherapie. Bei der autologen Stammzelltherapie erhält man seine eigenen Stammzellen zurück, bei der allogenen Spenderstammzellen. Bei MS-Patienten werden die eigenen Stammzellen wieder verabreicht. Dadurch besteht zwar das Risiko die MS wieder zurückzubekommen, aber die Risiken und Komplikationen sind viel geringer. Zuerst werden die Stammzellen gesammelt. Das erfolgt durch eine sogenannte Mobilisation. Dafür werden die Stammzellen aus dem Knochenmark ausgeschwemmt. Man gibt eine Chemotherapie, typischerweise Cyclophosphamid oder Endoxan. Beide wurden bereits vor 30 Jahren als Therapie bei Multipler Sklerose ausprobiert. In einer geringen Dosis aktivieren sie die Stammzellen, diese wandern dann vom Knochenmark ins Blut. Mit einer Abfilterungsanlage werden die Stammzellen in der Apharese gesammelt, die ähnlich der Plasmapherese oder Plasmaspende funktioniert. Anschließend werden die Stammzellen aufbereitet, geprüft ob alle funktionieren, eingefroren und wieder aufgetaut. Denn es muss sichergestellt werden, dass der MS-Patient funktionierende Stammzellen zurückerhält, alles andere wäre hochgradig gefährlich, da vorher ja das komplette Immunsystem platt gemacht wurde. Sehr gute Standards reduzieren dieses Risiko gegen Null. Danach ist der Patient wieder zuhause. Sprich erst Zellen mobilisieren, herausfiltern, aufbereiten und einfrieren. Danach kommt der Patient wieder zur eigentlichen Therapie. Diese beginnt mit der sogenannten Konditionierung. Das heißt, der Patient bekommt eine ganz massive Immunsuppression oder Chemotherapie, die das Immunsystem kaputtmacht. Das ist derzeit ebenfalls Cyclophosphamid oder Endoxan. Zusätzlich gibt man einen bestimmten Antikörper. Nun hat der Patient kein Immunsystem mehr. Würde man dem Patienten nun keine Stammzellen geben, würde dieser Patient innerhalb weniger Wochen oder Monate an einer Infektion versterben. Deshalb bekommt man seine aufbereiteten Stammzellen nach ein paar Tagen wieder, nach ca. einer Woche. Die Stammzellen wachsen dann an. Das dauert ca. eine Woche bis zehn Tage. Das Immunsystem erholt sich wieder. Bei optimalem Verlauf dauert dieser Teil der Therapie drei Wochen. In Hamburg lag der Durchschnitt bei drei bis fünf Wochen. Anschließend geht der Patient nach Hause. Das Immunsystems muss wieder aufgebaut werden. In den ersten drei Monaten muss man sehr vorsichtig sein und jede Woche zum Blutbildcheck. Man muss verschiedene Virus- und Pilzmittel nehmen, die den Körper vor Infektionen schützen. Ein Jahr braucht das Immunsystems ungefähr, um sich wieder aufzubauen. Welche Chancen und Gefahren stehen im Zusammenhang mit einer Stammzellentherapie? Aus den bisherigen Daten kann man sehen, dass die Entzündungsaktivität deutlich reduziert werden kann. Mehr als bei allen anderen hochwirksamen Therapien. Angestrebt wird eine nicht mehr nachweisbare Krankheitsaktivität, also keine Schübe, keine neuen Läsionen im MRT, keine Progression. Dieses ambitionierte Ziel bekommt man mit den Standardtherapien bei 40% der Patienten hin. Bei der Stammzelltransplantation schafft man es bei 60-80%, vielleicht sogar 90% der Patienten. Die Therapie hat ein hohes Potenzial, allerdings gibt es für die Stammzelltherapie bisher nur wenige Daten, eine viel kleinere Studienlage. Zusätzlich bietet die Therapie bisher für ein Drittel der Patienten die Chance, anschließend sogar besser zu werden. Die Patienten konnten sich erholen, weil das Immunsystem nun nicht mehr ständig neue Angriffe von der MS erlebte und Zeit hatte, seine körpereigenen Reparaturmechanismen zu fahren. Deshalb sind jüngere Menschen ideale Kandidaten, weil sie dieses Partizipationspotenzial noch haben. Demgegenüber stehen die Risiken, weshalb es viele Vorbehalte in Deutschland gegen dieses Verfahren gibt. Früher starben 3-5% der Patienten, weil man noch toxischere Chemotherapien einsetzte und ältere Patienten einschloss, die noch andere Erkrankungen hatten. Heutzutage liegt das Risiko bei unter 1%. Aber wichtig bis zu 1% therapiebezogene Sterblichkeit bleibt als Risiko bestehen. Es ist eine risikoreiche Therapie. In Hamburg wurden bisher 20 Patienten behandelt, keiner ist gestorben. Eine neue englische Serie mit 120 Patienten hatte drei Todesfälle. Allerdings waren da auch Patienten Mitte 60 dabei und mit Vorerkrankungen. Alle drei verstorbenen Patienten hatten Vorerkrankungen. In Deutschland ist die Grenze bei 40 bis 50 Jahren. Man kann außerdem sekundäre Autoimmunerkrankungen bekommen (5-6%). Meistens sind diese aber gut beherrschbar. Zusätzlich können sekundäre Krebserkrankungen auftreten ca. 3-4%. Und es kann zu Unfruchtbarkeit kommen für Männer, wie Frauen. Man sollte Eizellen bzw. Spermazellen einfrieren, um sich den Kinderwunsch später dennoch erfüllen zu können. Wie ausführlich werden in Frage kommende MS-Patienten über die Behandlung informiert und wie lange dauert der Entscheidungsprozess üblicherweise? Die Patienten, die sich in Hamburg melden, sind in der Regel sehr gut informiert. Teilweise über die Facebook-Gruppe der MS-Transplantierten. Somit führen wir meist ein erstes Gespräch, geben dann Bedenkzeit. Und beim zweiten Gespräch, wenn die Patienten sich immer noch sicher sind. In der Regel ist es für die Patienten relevant, deren normales Leben nicht mehr funktioniert, die alles andere an MS-Therapien ausprobiert haben, mit nur geringem Erfolg. Dann stehen Risiko und Nutzen in einem sinnvollen Verhältnis. und es geht eher darum, wie man an das Verfahren kommt. Für diese Patienten ist es eine Befreiungsschlagchance mit einem gewissen Restrisiko. Wie lange dauert die eigentliche Behandlung? Ungefähr ein Jahr. Die Mobilisation dauert eine Woche. Die Stammzelltherapie selbst drei bis fünf Wochen stationär. Daran schließen sich drei Monate Nachbeobachtung an. Also vier Monate ernstere Behandlungsphase. Anschließend kann man in die Reha oder lieber erst ein Jahr später, um das Immunsystem noch ein bisschen zu schonen, da dort schließlich mehr Kontakt mit anderen Menschen stattfindet. Das ist eigener Ermessensspielraum. Welche Reha-Maßnahmen oder anderen regenerativen Behandlungen folgen im Anschluss an die Stammzellentherapie? Nichts Spezifisches. Viele Patienten sind dann erstmal richtig schlapp und fühlen sich schlechter. Schließlich ist die Behandlung sehr intensiv und anstrengend für den Körper. Andere erholen sich schneller und trainieren viel zuhause. Das hilft auf jeden Fall. Allgemeine MS-spezialisierte Reha macht Sinn. Wie ist es, wenn man kleinere Kinder hat? Zum Glück übertragen Kinder in der Regel keine massiv gefährlichen Krankheiten. Wenn man es schafft, in den ersten drei Monaten eine gewisse Distanz einzuhalten oder das Kind eventuell zuhause zu behalten, wird das Risiko reduziert. Allerdings sollte man die psychische Belastung der Trennung auch nicht unterschätzen. Also abklären, diskutieren und dann individuell entscheiden. Wer trägt die Kosten für eine Stammzelltherapie bei MS in Deutschland? Grundsätzlich übernehmen die Krankenkassen in Deutschland die Kosten nicht, weil es keine etablierte Therapie ist. Eventuell kann man seine Krankenkasse davon überzeugen, die Kosten zu übernehmen. Ansonsten gibt es die Möglichkeit der Selbstfinanzierung. Das sind mindestens 35.000 bis 40.000 Euro in Deutschland. Man kann auch in die Schweiz, nach London, Mexiko oder Moskau gehen. In Hamburg wird nur die Behandlung über Studie angeboten bzw. bei Übernahme der Kosten durch die Krankenkasse. Was ist der Unterschied für MS-Patienten, wenn sie an der Studie zur Stammzelltherapie teilnehmen? An der Studie können zunächst nur Patienten im schubförmigen Verlauf teilnehmen, die eine Therapieversagen mit den Standardtherapien haben, unter 50 Jahre sind und die MS nicht länger als 10 Jahre haben. In der Studie wird die Stammzelltherapie mit Lemtrada oder Ocrevus verglichen, um aufzuzeigen, dass die Kosten der Stammzelltransplantation geringer sind, als mit den Standard hochwirksamen Medikamenten, um letztendlich hoffentlich eine Kostenübernahme für alle Patienten zu bewirken nach erfolgreich abgeschlossener Studie. Das heißt, man hat 50% Chancen die Stammzelltherapie zu erhalten, man kann aber auch in der anderen Gruppe landen und entscheidet dann gemeinsam mit seinem Arzt, ob man Lemtrada oder Ocrevus nimmt. Es wäre sehr ungünstig, wenn zu viele Patienten abspringen, bloß weil sich nicht die Stammzelltransplantation erhalten haben. Wenn die Patienten allerdings unter Lemtrada oder Ocrevus schlechter werden würden und der Behandlungserfolg ausbleibt, würden sie ebenfalls transplantiert werden. Bei einer ähnlichen Studie aus den USA wurden ungefähr die Hälfte der Patienten letztendlich doch transplantiert, weil die anderen Therapien nicht ausgereicht haben. Generell muss man zu vielen Kontrolluntersuchungen kommen. Anfangs alle drei Monate, später zweimal jährlich bis einmal jährlich inklusive MRT und Gehirnleistungstest, um die Langzeiterfolge zu messen. 50 Patienten werden für die Studie benötigt, das ist in 5 Jahren möglich. Realistischerweise könnte es in fünf bis zehn Jahren zur Kassenleistung werden, wenn es so gut läuft, wie erwartet. Gibt es weitere MS-Zentren in Deutschland, wo eine Studienteilnahme möglich ist? Die Uniklinik Mannheim ist dabei, das MS-Zentrum Dresden ist frisch dazugekommen und Düsseldorf könnte mit hinzukommen. Patienten sollen auch aus einem größeren Radius zu den vier teilnehmenden Kliniken kommen. Was sollten interessierte MS-Patienten machen, um abzuklären, ob sie geeignete Kandidaten für die Studie sind? Sinnvollerweise sollten sich interessierte Patienten momentan in Hamburg melden unter . Gerne auch telefonisch. Zunächst würden wir die Kerninformationen klären, ob der Kandidat passt und alle wichtigen Informationen zur Aufklärung hat. Von den Patienten, die sich melden, sind 20-30% geeignet. Sobald, die ersten zwei drei Patienten in Hamburg in Behandlung sind, können bestimmt auch die anderen Zentren aktiv loslegen. Und falls es viele Anfragen zur generellen Therapie gibt, die dann aber größtenteils nicht in Hamburg durchgeführt werden, können hoffentlich auch die anderen Zentren mit bei der Aufklärung und Information der Patienten mithelfen. Blitzlicht-Runde Vervollständigen Sie den Satz: „Für mich ist die Multiple Sklerose… eine sehr unterschiedlich verlaufende Krankheit, die eine hochindustrialisierte Therapie braucht.“ Welche Internet-Seite können Sie zum Thema MS empfehlen? DMSG Hamburg und unsere MS-Ambulanz Seite am UKE Hamburg. Welchen Durchbruch in der Forschung und Behandlung zur MS wünschen Sie sich in den kommenden 5 Jahren? Die Etablierung der Stammzelltherapie. Das Sport- und Ausdauertraining mehr ins Bewusstsein rückt und sich für die Regeneration und Prävention etabliert. Möchten Sie den Hörerinnen und Hörern noch etwas mit auf dem Weg geben? Finden sie ihren eigenen Weg mit der MS. Und suchen sie sich Ärzte, die sie dabei unterstützen. Wie erreicht man die MS-Ambulanz am UKE in Hamburg? Am besten per E-Mail: multiplesklerose[at]uke.de oder telefonisch 040-7410-54076. +++++++++ Vielen Dank an Prof. Christoph Heesen für das geführte Interview und den umfassenden Ein- und Überblick zur Stammzelltransplantation bei Multipler Sklerose. Bestmögliche Gesundheit wünscht dir, Nele Mehr Informationen rund um das Thema MS erhältst du in meinem kostenlosen Newsletter. Hier findest du eine Übersicht zu allen bisher veröffentlichten Podcastfolgen.

Welcome to Living Well with MS Coffee Break #21, where we are pleased to welcome Julie Pankhurst as our guest!   Our Coffee Break series is your chance to get to know members of our diverse OMS community. In each episode, you'll join Geoff Allix for an intimate chat with a different member of our global community. Our guests will share their personal stories and talk about their challenges and victories, large and small. We hope you find common cause and a source of inspiration from the stories of these very special people.   As always, your comments and suggestions are always welcome by emailing podcast@overcomingms.org. We hope you enjoy this episode's conversation with Julie, coming to you straight from Surrey, England.   Julie's Professional Bio (in her own words):   I trained to be a software engineer straight out of school in the mid 80s. There weren't many female engineers at that time, which appealed to me a lot as at age 18, I wanted to prove that I was just as good as any man out there! This perhaps stemmed from the friendly competitive nature between my brother and me (a friendly rivalry that still exists today!)   In 1999, while pregnant with my first of two daughters, I used a website called phonenumbers.net and literally over a weekend I was able to track down my grandfather, who had left his wife and child (my father) in the 1940s to set up home in Denmark.  This was the first time that I recognized the enormous power of the Internet. In the 1990s it seemed that everyone was looking for the next big Dotcom idea. While many people were putting their shop online, I sought ideas that could appeal to an even wider range of people. This was when I had the thought that everyone in the UK went to school and might like to know what had happened to their old primary school friends, just like I did in the case of a friend who had left London to live in Edinburgh when she was 10. This was the simple idea behind FriendsReunited, which was set up in 2000: a UK website through which people could easily track down their old school chums by searching for the year group within their school.    My husband and I sold the company in 2005 and since then have taken great delight in being parents, philanthropists, and travelling.   Julie's MS Bio (in her own words):   Over the last seven years or so I'd seen my GP once a year with issues that were niggling me: memory problems, pins and needles in my feet, incontinence, balance, and walking issues, etc. These were all dismissed as nothing significant. My memory problems concerned me greatly but when I suggested that I wanted to pay for a full health check I was told not to waste my money. A year later, on Valentine's Day 2019, my husband and I each had a full health checkup which included brain MRIs. The doctor first thought my symptoms were due to being peri-menopausal until she saw the results from the brain MRI. This is when it was pointed out to me that I had lesions in my brain which could be MS. I visited a neurologist who diagnosed me with primary progressive MS. My world fell apart. All the dreams that I had to travel the world once our daughters left school disappeared. In June 2019 a friend mentioned the OMS program. On researching further, I learned that there was going to be an OMS retreat the next month. I signed up straight away. I did not know anyone with MS and went to this retreat feeling very alone and scared of seeing how my future was going to be. I left the retreat having made many supportive friends and incredibly positive about my future. OMS gave me the tools to be proactive daily rather than simply seeing a neurologist just once a year.   In November 2019, an agonizingly long time after my first diagnosis, I got to meet a NHS neurologist who almost immediately said that she did not believe I had primary progressive MS but instead she thought it was relapsing remitting MS.     I still am not sure what type of MS I have but whatever it is I am hopeful that by following the OMS lifestyle and having Ocrevus infusions I can stop it in its tracks!   Questions:   Julie, welcome to Living Well with MS Coffee Break. We're so pleased to have you on our program. The purpose of this series is to better get to know some of the diverse members of our community from around the world, and today you're in the hot seat. Can you tell us a little about your day-to-day life? When were you diagnosed with MS? Can you provide some context on that? When were you diagnosed and how did you initially deal with it? At which point did you come across the OMS program? How was that experience for you? Why did you decide to start following it? I understand you used to be a vegetarian and then a pescatarian pre-OMS for over 15 years. Did that help you adjust to the OMS diet? You also have quite an interesting daily fitness regimen. Tell us more about Zoom yoga. What are some of the challenges you've faced at first in adopting the OMS program? How did you overcome them? When did you first start to see any kind of positive indicators in following OMS guidelines? What were these? In looking at your professional past, you and your husband started a company in the early days of the Internet boom, which you then sold in 2005 allowing you to focus much of your time on philanthropy. In full disclosure, your charitable trust is one of the supporters of this podcast, for which we're very grateful. Why is philanthropy so important to you? What kind of impact would you like to make in the world? Why was it important for you to offer philanthropic support to OMS, and what advice would you give to others about supporting OMS? I learned about an interesting hobby you have – exploring family ancestry. In fact, your ancestry was indirectly responsible for the successful Internet company you and your husband launched. Can you share a little more about your genealogical bug? Back to the topic of MS, something quite topical these days is the question of people with MS and the need to get vaccinated. You've been vaccinated but the DMD you're on has had a strange effect on your antibodies. Can you speak to that and share your thoughts on what it might mean to our audience? Julie, we are ever so grateful for you being on Living Well with MS Coffee Break and allowing our community to get to know one of its own a little better. One last question before you go, and it's a bit of a tradition in that we ask it of all our Coffee Break guests. If you tap into your experience with MS generally and OMS specifically for a nugget of wisdom that would help people ease into and better adopt the OMS program, what would that advice be?   Interesting Factoids About Julie   Julie loves photography, and she intends to focus (pun intended) on it more in the future.  Julie is passionate about researching her family ancestry through a website she created, genesreunited. Through the site, she has been in contact with her father's half-sister, who never knew she and her brother even existed! Julie keeps fit physically and mentally through daily Zoom yoga sessions. Julie and her husband are active philanthropists (including support provided to this podcast through The Happy Charitable Trust). Two of her other favorite charities to support are Plan International and Kiva, as their focus is to empower people in less economically-developed countries. Through Plan International UK, Julie and her husband have sponsored children and helped to build several schools around the world and have been privileged to visit them, too.   Julie's Links:   Follow Julie on Twitter Check out other Twitter feeds Julie loves: Aaron Boster, Dr. Brandon Beaber, and Prof. Gavin Giovannoni Julie loves the yoga website Taming the Walrus, run by OMS facilitator Veronique Gauthier-Simmons Julie gets great health tips from Chatterjee   Coming up on our next episode:   Tune in on September 8, 2021, for the next episode of Living Well with MS, where Geoff sits down with Dr. Michael Kornberg, an Assistant Professor of Neurology at the world-renowned Johns Hopkins University in Baltimore, Maryland. Dr. Kornberg is on the forefront of scientific research in MS, and he'll share some of his insights into what's on the research horizon for today and beyond.   Don't miss out:   Subscribe to this podcast and never miss an episode. You can catch any episode of Living Well with MS here or on your favorite podcast listening app. Don't be shy – if you like the program, leave a review on Apple Podcasts or wherever you tune into the show. And feel free to share your comments and suggestions by emailing podcast@overcomingms.org.

Happy Tuesday everyone! Sorry for the absence last week, but yay! We're back with another interview! And today I'm chatting to Anu Dravid about her diagnosis of multiple sclerosis (MS) back when she was just 17 years old. In this episode Anu talks us through her diagnosis, she discusses the various different MS treatments she has been on - including flying to the USA to receive Ocrevus infusions before it was funded here in NZ - what MS looks like on the day to day for her, and how being diagnosed has inspired her passion for studying physiology and pharmacology. For more information about MS Auckland head to: msakl.org.nz If aHSCT is something you are considering for your MS, or you're interested in learning more, check out Rachel's interview episode (just a couple of scrolls back!) ** This episode is dedicated to the lovely Ingrid. ** Ingrid was the general manager of MS Auckland, was one of my biggest cheerleaders, and is who connected Anu and I together originally. She was really excited to hear Anu on the podcast and sadly passed away a week before this episode was released. I know she would've loved this interview, and I hope you do too. As always feel free to reach out on instagram, I'm @thatssochronic. I love hearing from you all and seeing where you're listening to the podcast, so keep the shares coming! @thatssochronic | @jessssbrien | #thatssochronic Want to chat even more? SEND IN A VOICE NOTE! Send me a message on the That's So Chronic hotline. Just head to jessbrien.com/hotline Want to share your story on That's So Chronic? Here's the application form: https://forms.gle/csebLkwfwAjiLApK9 Or have an idea for an upcoming That's So: episode? Let me know here: https://forms.gle/4RZbCiHARjV5gmcWA Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others. Hosted on Acast. See acast.com/privacy for more information.

Summertime traditionally means getting out of the house, enjoying outdoor activities, and being active. But if you're living with MS, outdoor activity and summertime temperatures can raise red flags when it comes to your day-to-day quality of life. My guest is Dr. Colin Lenington, an Occupational Therapist and Clinical Specialist at the VA Long Beach Healthcare System and we're talking about getting outside, staying safe, and keeping cool while you enjoy your summer activities. We're joining the World Federation of Neurology and the global MS community on July 22nd, to celebrate World Brain Day 2021. This year's theme is Stop Multiple Sclerosis and we'll tell you where and how to register for the upcoming World Brain Day webinar. We're also talking about study results that show the impact of delaying an Ocrevus infusion in order to enhance the effect of a COVID-19 vaccination. We'll tell you about a study in the U.K. that followed 120 people with MS who received autologous hematopoietic stem cell transplantation (aHSCT). We'll share news about a new way to successfully cross the blood-brain barrier and deliver medicines to the central nervous system. (And we'll explain why that matters when it comes to treating MS) And we'll tell you about a study of veterans with MS that should convince anyone to adhere to their DMT treatment plan. We have a lot to talk about! Are you ready for RealTalk MS??! July 22nd is World Brain Day!  :22 My live conversation with Dr. Victoria Leavitt takes place this Wednesday, on the eSupport Health Wednesday Workshop   :55 Study shows the effect of extended interval dosing of Ocrevus  2:46 Study shows real-world outcomes for 120 people with MS who received aHSCT  5:49 Biopharmaceutical company successfully delivers an anti-inflammatory molecule across the blood-brain barrier  7:43 Study shows the benefits of adhering to DMTs  9:03 Dr. Colin Lenington talks about how to enjoy summertime activities while staying safe and staying cool  11:24 Share this episode  24:25 Catch my live conversation with Dr. Victoria Leavitt on Wednesday  24:48 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/203 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance World Brain Day 2021 https://wfneurology.org/world-brain-day-2021 Register for the eSupport Health Wednesday Workshop: A Conversation with Jon Strum https://esupporthealth.zoom.us/meeting/register/tJEpc--rqT0vHdJ6FbPDH7S1enOrLYAIQG-K STUDY: Ocrelizumab Extended Interval Dosing in Multiple Sclerosis in Times of COVID-19https://nn.neurology.org/content/8/5/e1035 STUDY: Autologous Haematopoietic Stem Cell Transplantation in Active Multiple Sclerosis: A Real-World Case Serieshttps://n.neurology.org/content/early/2021/07/12/WNL.0000000000012449 Bioasis Announces Positive Results from Efficacy Study of xB3TM -1L-1RA in a Model of Multiple Sclerosis https://www.globenewswire.com/news-release/2021/07/07/2259430/0/en/Bioasis-Announces-Positive-Results-From-an-Efficacy-Study-of-xB3-IL-1RA-in-a-Model-of-Multiple-Sclerosis.html STUDY: The Impact of Adherence to Disease-Modifying Therapies on Functional Outcomes in Veterans with Multiple Sclerosis https://journals.sagepub.com/doi/pdf/10.1177/11795735211028769 Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Androidhttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 203 Guest: Dr. Colin Lenington Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

EP177 Comic Book talk about The Rejected Dead Girl one shot, Stake #1 to 3. Multiple Sclerosis talk about Ocrevus and MS. Send questions and comments to kevinthedeadpool@gmail.com --- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app --- Send in a voice message: https://anchor.fm/kevin-kleinhans/message Support this podcast: https://anchor.fm/kevin-kleinhans/support

When Pierluigi Montovani saw what was available to help his father rehabilitate his MS-related foot drop, he was motivated to invent something better. Pierluigi recruited a couple of friends and their efforts led to a breakthrough solution for foot drop that was declared the winner of the Lyfebulb and Bristol Myers Squibb Addressing Unmet Needs in MS: Innovation Challenge. Pierluigi joins me as my guest this week to discuss EvoWalk, his award-winning example of innovation in MS rehabilitation. We'll also share some very unsettling realities about MS treatment that have been revealed in the latest addition to the MS International Federation's Atlas of MS. We're checking in with an exercise coach and one of the participants in the STEP for MS trial. You'll hear about this participant's remarkable progress and we'll tell you how you can still participate in this study. We'll tell you about a new Yale University study that's designed to determine whether Ocrevus can prevent the onset of MS in people diagnosed with radiologically isolated syndrome. And although the oral disease-modifying therapy Ozanimod (Zeposia) has already been approved to treat relapsing-remitting MS in the U.S., Canada, and Europe, we'll update you on the decision not to approve it for use in England and Wales. We have a lot to talk about! Are you ready for RealTalk MS??! Atlas of MS, Part 2 Reveals Some Unsettling Truths  2:19 Zeposia fails to win approval by NICE  6:10 The Step for MS Study with Brendon Truax and Bo Roberts  8:15 Yale study will test whether Ocrevus can prevent MS in patients diagnosed with RIS  14:23 Pierluigi Montovani discusses his father's inspiration in developing EvoWalk for rehabilitating MS foot drop  16:49 Share this episode  27:44 Have a minute? Leave a rating & review for the podcast  28:05 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/194 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.comPhone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society COVID-19 Vaccine Guidance for People Living with MS Introducing EvoWalk Atlas of MS STUDY: Prevention of Clinical Multiple Sclerosis in Individuals with Radiologically Isolated Disease Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating and Review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 194 Guests: Brendon Truax, Bo Roberts, and Pierluigi Montovani Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

I will be discussing findings from a 54-year-old male with a 12-year history of multiple sclerosis who was diagnosed with Babesia microti. This article was written by Haberli  and colleagues in the journal Multiple Sclerosis and Related Disorders.He failed treatment with 4 different disease modifying drugs ─ glatiramer acetate, natalizumab, dimethyl fumarate, and fingolimod.  He was lost to followup for 6 years. He was seen again 12 years after the onset of his multiple sclerosis. The doctor suspected a recurrence of his multiple sclerosis and treated him  with  another disease modifying drug  called Ocrevus™. He was hospitalized 4 months later for possible sepsis. He was diagnosed with Babesia.   He required 8 weeks of treatment.  There are two unanswered question.  Was the flareup of multiple sclerosis after 12 years due to Babesia.  Or was the severity of his Babesia due to taking an immunosuppressive agent Ocrevus™.1.         Haberli N, Coban H, Padam C, Montezuma-Rusca JM, Creed MA, Imitola J. Babesia microti infection in a patient with multiple sclerosis treated with ocrelizumab. Mult Scler Relat Disord. You can hear more about these cases through his blogs, social media, and YouTube. Sign up for our newsletter to keep up with these cases.How to Connect with Dr. Daniel Cameron:Check out his website: https://www.DanielCameronMD.com/Call his office: 914-666-4665Email him: DCameron@DanielCameronMD.com Send him a request:  https://danielcameronmd.com/contact-daniel-cameron-md/Like him on Instagram: https://www.instagram.com/drdanielcameron/Join his Facebook group: https://www.facebook.com/danielcameronmd/Follow him on Twitter: https://twitter.com/DrDanielCameronSign up for his newsletter: https://www.DanielCameronMD.com/Subscribe and ring the bell: https://www.youtube.com/user/danielcameronmd/ Leave a review on iTunes or wherever else you get your podcasts.We, of course, hope you’ll join the conversation, connect with us and other readers, ask questions, and share your insights. Dr. Cameron is a Lyme disease expert and the author "Inside Lyme: An expert's guide to the science of Lyme disease." He has been treating adolescents and adults for more than 30 years.Please remember that the advice given is general and not intended as specific advice as to any particular patient. If you require specific advice, then please seek that advice from an experienced professional.

Multiple Sclerosis News Today's columnist, Jenn Powell, discusses how an AI-powered robotic glove may help improve hand grip strength in those with MS. Multiple Sclerosis News Today's multimedia associate, Price Wooldridge, reads the column by Ed Tobias, MS Wire, “Ocrevus and PML: Should We Be Worried?” ===================================== Treatment for Relapsing MS Progression | MAYZENT® (siponimod) Read about MAYZENT, a once daily pill that can significantly slow down disability progression in people with relapsing MS. See full prescribing & safety info. https://www.mayzent.com/?utm_source=changeinrms&utm_medium=vanityurl&utm_campaign=novartis_mayzent_2020&utm_content=soundcloud ===================================== Are you interested in learning more about multiple sclerosis? If so, please visit: https://multiplesclerosisnewstoday.com/ ===================================== To join in on conversations regarding multiple sclerosis, please visit: https://multiplesclerosisnewstoday.com/forums/

Multiple Sclerosis News Today's columnist, Jenn Powell, discusses the FDA approval of a shorter infusion time for the MS therapy Ocrevus. Plus, Multiple Sclerosis News Today's multimedia associate, Price Wooldridge, reads Jessie Ace's column, DISabled to ENabled, on the things people say when you tell them about your multiple sclerosis diagnosis. ===================================== Treatment for Relapsing MS Progression | MAYZENT® (siponimod) Read about MAYZENT, a once daily pill that can significantly slow down disability progression in people with relapsing MS. See full prescribing & safety info. https://www.mayzent.com/?utm_source=changeinrms&utm_medium=vanityurl&utm_campaign=novartis_mayzent_2020&utm_content=soundcloud ===================================== Are you interested in learning more about multiple sclerosis? If so, please visit: https://multiplesclerosisnewstoday.com/ ===================================== To join in on conversations regarding multiple sclerosis, please visit: https://multiplesclerosisnewstoday.com/forums/

It's safe to say that this year, the biggest gift of the holiday season has been the arrival of not one, but two COVID-19 vaccines. Still, while the COVID-19 vaccines have created a tremendous amount of hope, they've also created an equal number of questions among people who are living with MS.  So the National MS Society has convened a group of experts to provide guidance for people living with MS when it comes to making decisions about the safety, efficacy, and the timing of COVID-19 vaccines as they relate to certain MS disease-modifying therapies.   As the Chair of the MS Society’s National Medical Advisory Committee, my guest, Dr. Nancy Sicotte, is leading the effort to create this very important guidance.    Dr. Sicotte is a Professor and Chair of the Department of Neurology at Cedars-Sinai Medical Center in Los Angeles, where she's also the Director of the Multiple Sclerosis and Neuroimmunology Program.    We'll also talking about the FDA's approval to shorten the time required for an Ocrevus infusion.   We'll tell you about new study results that show Mayzent may improve cognitive processing speed among people with progressive MS.   And if you're living with progressive MS, we'll tell you about an important clinical trial that you may be eligible to participate in.   We have a lot to talk about! Are you ready for RealTalk MS??! Happy Holidays!  :24 Shortened infusion time for Ocrevus  2:10 Mayzent may improve thinking skills among people with progressive MS  3:30 Investigators are recruiting people with progressive MS for a clinical trial  5:21 My interview with Dr. Nancy Sicotte 8:48 Share this episode  23:57 Donate to the National MS Society COVID-19 Response Fund  24:18 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email:  https://realtalkms.com/173 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.comPhone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Give RealTalk MS a Rating and Review National MS Society's Ask An MS Expert Video Replay What You Need to Know About Coronavirus (COVID-19) STUDY: Shorter Infusion Time of Ocrelizumab: Results from the Randomized, Double-Blind ENSEMBLE  PLUS Study in Patients with Relapsing-Remitting Multiple Sclerosis   STUDY: Siponimod and Cognition in Secondary Progressive Multiple Sclerosis: EXPAND Secondary Analyses   For More Information About the Tolebrutinib Clinical Trial: Phone: (800) 733-1610 Email: US@sanofi.com   National MS Society COVID-19 Response Fund Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating and Review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 173 Guests: Dr. Nancy Sicotte Tags: MS, MultipleSclerosis, MSResearch, MSSociety, MSActivist,  COVID19, Vaccine, RealTalkMS Privacy Policy  

EP52 Violator #1 to 3 from image comics and Todd McFarlane, Grimm Tales of Terror quarterly Hellfire from Zenescope. Short term and long term effects of MS, Multiple Sclerosis update on my Ocrevus infusion and the aftermath with steroids. --- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app --- Send in a voice message: https://anchor.fm/kevin-kleinhans/message Support this podcast: https://anchor.fm/kevin-kleinhans/support

Disease-modifying therapies are the cornerstone of any effective MS treatment plan. But with more than 20 approved prescription medications available today, the choices can seem overwhelming.   People living with MS have questions -- Do you start out with a safe but less effective medication, or do you hit MS hard with a high-efficacy drug that may carry more risks? When is the right time to consider switching medications, and how do you have that conversation with your neurologist? Do things like other health conditions affect which disease-modifying therapy you're on? And what about aging?    My guest is Dr. Scott Newsome, an Associate Professor of Neurology, and Director of Neurosciences Consultation and Infusion Center at Johns Hopkins Medicine. Dr. Newsome also serves as the Co-Director of the Multiple Sclerosis Experimental Therapeutics Program at Johns Hopkins.  And I'm devoting this entire episode of RealTalk MS to taking a deep-dive into disease-modifying therapies with Dr. Newsome.   We'll also give you the details about two major events taking place this week -- the MSVirtual2020 conference and the Keep Moving Forward benefit celebrating the MS Movement.   We have a lot to talk about! Are you ready for RealTalk MS??! ECTRIMS + ACTRIMS = MSVirtual2020  :24 Don't miss Keep Moving Forward  1:08 My Interview with Dr. Scott Newsome  1:38 Share this episode  33:06 Leave a rating & review  33:26 Please Support the National MS Society COVID-19 Response Fund  34:45 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email:  realtalkms.com/158 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.comPhone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Give RealTalk MS a Rating and Review National MS Society's Ask An MS Expert Video Replay National MS Society COVID-19 Response Fund Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 158 Hosted By: Jon Strum Guests: Dr. Scott Newsome Tags: MS, MultipleSclerosis, MSResearch, MSSociety, Tecfidera, Ocrevus, Kesimpta, Copaxone, Gilenya, RealTalkMS Privacy Policy    

World of Reading Star Wars - Rey meets BB-8, Use the Force. How the Ewoks saved the trees, Battle of the Bounty Hunters pop-up book, Return of the Jedi storybook and Fifties Horror. Some new Multiple Sclerosis news about Ocrevus and more cooking info. --- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app --- Send in a voice message: https://anchor.fm/kevin-kleinhans/message Support this podcast: https://anchor.fm/kevin-kleinhans/support

Rock n Roll comics featuring Ozzy Osbourne, Prince, Guns N Roses, Warrant, Def Leppard, Metallica, Motley Crue, Aerosmith and more. Insane Clown Posse the Upz & Downz of the Wicked Clownz, and The Pendulum 12 issue set with cd's. Sleep Apnea and CPAP talk and some information about a new DMT and Ocrevus and chicken pox. --- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app --- Send in a voice message: https://anchor.fm/kevin-kleinhans/message Support this podcast: https://anchor.fm/kevin-kleinhans/support

Whether you call it brain fog, cog-fog, or you don't happen to have a name for it, cognitive dysfunction affects more than half of all the people with MS.   Joining me once again is Dr. Meghan Beier, a Rehabilitation Neuropsychologist and Assistant Professor of Physical Medicine at the Johns Hopkins University School of Medicine. Dr. Beier specializes in cognitive rehabilitation and neuropsychological assessment and intervention and she's back to answer more of our questions about managing the cognitive issues typically associated with MS.     We're also talking about Kesimpta (ofatumumab), the high-efficacy b-cell disease-modifying therapy that just received FDA approval.   We'll tell you about the case study of a patient who lost their vaccination immunity to the Varicella-Zoster virus (causes chickenpox & shingles) after receiving their first Ocrevus infusion.   We'll give you the details about the generic for Tecfidera that's going to be available in just a few weeks. And we'll tell you why the U.S. Department of Justice is suing Teva, the manufacturer of Copaxone.   We'll share all the details and let you know where to register for the National MS Society's Black MS Experience Summit.   And we'll tell you how a research team from Facebook (yup -- you read that right!) and New York University is hoping to speed up MRI exams.   We have a lot to talk about! Are you ready for RealTalk MS??! We're trending!  :22 FDA approves ofatumumab (Kesimpta) for treating relapsing-remitting MS and active secondary-progressive MS  3:53 Patient loses vaccination immunity for Varicella-Zoster virus after Ocrevus infusion    5:44 Generic for Tecfidera will be available in September  8:25 U.S. Department of Justice sues Coaxone manufacturer, Teva  9:18 National MS Society to convene the Black MS Experience Summit  12:24 Facebook & New York University research team develop artificial intelligence technology that will speed up MRI exams  13:26 My Interview with Dr. Meghan Beier  15:48 Share this episode  29:38 Leave a rating & review  29:58 Please Support the National MS Society COVID-19 Response Fund  30:22 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email:  https://realtalkms.com/156 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.comPhone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Give RealTalk MS a Rating and Review National MS Society's Ask An MS Expert Video Replay What You Need to Know About Coronavirus (COVID-19) Varicella-Zoster Immunity Loss in Multiple Sclerosis Patient Treated with Ocrelizumab National MS Society Black MS Experience Summit National MS Society COVID-19 Response Fund Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating and Review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 156 Hosted By: Jon Strum Guests: Dr. Meghan Beier Tags: MS, MultipleSclerosis, MSResearch, MSSociety, Tecfidera, Ocrevus, Kesimpta, Ofatumumab, RealTalkMS Privacy Policy

Conversations about MS almost always get around to the high cost of MS disease-modifying therapies. Joining me on the podcast is the CEO of Genentech, Alexander Hardy. Genentech is a biotech company that many of you know as the manufacturer of Ocrevus, the first approved disease-modifying therapy that treats both relapsing-remitting MS and primary progressive MS.   During our wide-ranging conversation, Alexander and I get into the cost of MS prescription medications, the real costs of bringing a new drug to market, racial disparities in clinical trials, inequities in our healthcare system, and more. It's a conversation that you won't want to miss.     We'll also tell you where you can get a FREE copy of Dr. Brandon Beaber's book, Resilience in the Face of Multiple Sclerosis, and where to sign up for the next series of Virtual Jumpstart programs from CAN-DO MS. We'll even share the details about this Sunday's Longest Day of Golf,  a creative (and very successful!) DIY fundraising event for the National MS Society.   We're also talking about a newly published study that shows that most relapsing-remitting MS disability accumulation is progressive and not tied to relapses.   And we'll tell you about another study that shows that most people living with MS want to discuss the cost of their treatment with their neurologist, but very few do. We'll even share our thoughts about how we can begin to fix this.   We have a lot to talk about! Are you ready for RealTalk MS??! It's Our 150th Episode!  :22 Get in Touch with RealTalk MS  1:36 Get Your Free Copy of Resilience in the Face of Multiple Sclerosis    3:34 CAN-DO MS Virtual Jumpstart Programs  4:43 The Longest Day of Golf Fundraising Event for the National MS Society  5:38 Study Finds Most Relapsing-Remitting MS Disability Accumulation Is Progressive and Not Tied to Relapses   7:29 Survey Shows Most MS Patients Want to Discuss the Cost of MS Care...But Don't  9:50 "Patients" are Customers!  11:31 My Interview with Alexander Hardy  13:09 Share this episode  29:31 Please Support the National MS Society COVID-19 Response Fund  29:50 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email:  https://realtalkms.com/150 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.comPhone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society's Ask An MS Expert Video Replay What You Need to Know About Coronavirus (COVID-19) National MS Society COVID-19 Response Fund To receive a free copy of Resilience in the Face of Multiple Sclerosis, just jump onto Twitter, and request your copy by sending a Tweet to the author, @Brandon_Beaber. CAN-DO MS Virtual Jumpstart Programs Longest Day of Golf Fundraising Event for the National MS Society STUDY: Contribution of Relapse-Independent Progression vs Relapse-Associated Worsening to Overall Confirmed Disability Accumulation in Typical Relapsing Multiple Sclerosis in a Pooled Analysis of 2 Randomized Clinical Trials STUDY: Perceptions and Experiences of Multiple Sclerosis Patients Regarding Out-of-Pocket Costs of Care Discussions Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating and Review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 150 Hosted By: Jon Strum Guests: Alexander Hardy Tags: MS, MultipleSclerosis, MSResearch, MSSociety, Genentech, Ocrevus, Resilience, RealTalkMS Privacy Policy

Integrative medicine combines evidence-based alternative medicine with conventional medicine. My guest is Dr. Allen Bowling, an internationally renowned neurologist who specializes in integrative medicine for MS.      When it comes to care and treatment for MS, Dr. Bowling has published over 100 articles in clinical and basic science journals. He's been involved in research related to nutrition, dietary supplements, and other non-pharmacologic therapies for the past 30 years. And our conversation covers CBD and other cannabis products as potential treatments for MS symptoms, we'll talk about diet and exercise, over the counter supplements, maintaining your emotional health, and lots more.   An international committee of distinguished experts has just issued an important clarification in the terminology used to describe the status of a person with MS (including "active" secondary progressive, "worsening", and "progression"). We'll tell you all about this clarification and explain how it affects everything from recruiting for clinical trials to providing access to current MS disease-modifying therapies.   We're also talking about a new Cleveland Clinic study that shows that neurological function deteriorates more quickly in depressed MS patients. We'll tell you about a study that underscores the importance of screening and treating people living with MS for anxiety along with depression. And you'll hear about a new web-based tool designed to help manage your emotional wellness.   We have a lot to talk about! Are you ready for RealTalk MS??! Expert panel clarifies terms used in describing MS disease status  2:33 COVID-19 in people with MS being treated with Ocrevus  7:45 Study shows neurological function deteriorates quicker in depressed MS patients    10:44 Anxiety & Depression in MS -- Study measures impact on quality of life  13:34 MS Trust & Biogen launch ACT MySelf web-based emotional wellness tool  16:06 My Interview with Dr. Allen Bowling  19:19 Share this episode  43:18 Please Support the National MS Society COVID-19 Response Fund  43:41 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/146 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society's Ask An MS Expert Video Replay What You Need to Know About Coronavirus (COVID-19) National MS Society COVID-19 Response Fund Dr. Allen Bowling: Neurology Care The 2013 Clinical Course Descriptors for Multiple Sclerosis: A Clarification COVID-19 in Persons with Multiple Sclerosis Treated with Ocrelizumab -- A Pharmacovigilance Case Series STUDY: Depression in MS is Associated with Worsening Neuroperformance, Relapses, and New Brain Lesions STUDY: Anxiety and Depression in Multiple Sclerosis (MS): Antecedents, Consequences, and Differential Impact on Well-Being and Quality of Life ACT MySelf Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating and Review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 146 Hosted By: Jon Strum Guests: Dr. Allen C. Bowling Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

MS changes as we age and it follows that managing MS should change, too. We're talking about managing MS through different stages of life with Dr. Jennifer Graves, an associate professor of neuroscience at UC San Diego Health, Director of the UC San Diego Neuroimmunology Research Program, and the Director of the Rady Children’s Hospital Pediatric MS Clinic.   There's also lots of news to share about MS disease-modifying therapies including the availability of a newly-approved DMT, an extended FDA review of a potential DMT that was expected to be approved this month, encouraging news about yet another potential DMT that's currently in development, and a change in an already-approved DMT. We have a lot to talk about! Are you ready for RealTalk MS??! An important message from National MS Society President & CEO, Cyndi Zagieboylo  :21 Did you catch our special bonus episode recapping the Consortium of MS Centers Annual Meeting?  2:32 Zeposia, a new MS disease-modifying therapy is now available in the U.S.  4:33 FDA Extends its review of Ofatumumab  5:51 EMD Serono Shares Encouraging Data from its Phase 2 Clinical Trial of Evobrutinib  6:59 EMA Approves Shorter Infusion Time for Ocrevus  7:52 My Interview with Dr. Jennifer Graves  9:07 Share this episode  25:26 Please Support the National MS Society COVID-19 Response Fund  25:50 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/145 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society's Ask An MS Expert Video Replay What You Need to Know About Coronavirus (COVID-19) National MS Society COVID-19 Response Fund Special Episode: CMSC 2020 Annual Meeting Recap Zeposia Patient Information Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating and Review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 145 Hosted By: Jon Strum Guests: Dr. Jennifer Graves Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

We discuss the most aggressive form of MS known as PPMS or Primary-Progressive MS. Jamie was diagnosed with PPMS just two years ago. His Doctors are amazed he is still walking. His story is one of perseverance and he’s an inspiration to us all. Thanks Jamie for being so open about your day-to-day struggles with MS. Your story gives hope to those in their battle with the disease. Keep fighting the good fight! Guest: To contact Jamie email jshann902@gmail.com Contact: Host Andrea Dunn @TeamDunner For more information on the MS Society of Canada @MSSocietyCanada For more details on Ocrevus, speak to your healthcare provider and have them contact COMPASS™ for enrollment instructions by calling 1-888-334-5956. See omnystudio.com/listener for privacy information.

This is the 2nd part to this interview. Holly is a young person with Primary Progressive MS. Her diagnosis story is one of frustration. She was aged 24 at her eventual diagnosis but she had to go to her Doctor 3 times and kept being told ‘there's nothing wrong with you'. Prof. Giovannoni from St. Barts in London is her consultant for Disease Modifying Drugs - Ocrevus. She has only had 2 x half infusions and has seen some slight improvement in walking and bowel function. The future looks positive and Holly has started looking after herself and putting herself first for the first time in her life.   Copyright: Bron Webster 2020 More episodes available at: https://themsshow.libsyn.com/

Holly is a young person with Primary Progressive MS. Her diagnosis story is one of frustration. She was aged 24 at her eventual diagnosis but she had to go to her Doctor 3 times and kept being told ‘there's nothing wrong with you'. Using some great advice from her Personal Trainer, Holly was eventually sent by her Doctor to hospital. Several MRI scans later, one using contrast dye, the diagnosis became clearer.  “If it was a female consultant it might have been a bit different” We talk about Holly learning how to self-catheterise and also clear out her bowels - because with Multiple Sclerosis these things are common, but not easily spoken about. “I look at the smaller picture … I look at each day rather than getting through a month” “If I went to part-time, that's me letting the MS win”   Initially, she was diagnosed with demyelination and was told that because of the ‘single' event it could not be classed as ‘multiple sclerosis'. This changed after further scans. The MS Society asked Holly to help in the Parliamentary campaign to gain approval for Ocrevus (the only Disease Modifying drug presently available for Primary Progressive MS.     Copyright Bron Webster 2020

My Experience At The Infusion Center During The Pandemic | How Many Times Do I Have To Redo My Website? Each year, I have to go to an infusion center twice to be injected with a medicine called Ocrevus. Getting infused with Ocrevus greatly reduces the progression of my multiple sclerosis.  https://www.trulyfearlesslife.com/ https://www.youtube.com/tedfauster --- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app Support this podcast: https://anchor.fm/trulyfearlesslife/support

MS research has reached an important moment. My guest, Dr. Bruce Bebo, calls it "an inflection point." Dr. Bebo is the Executive Vice-President of Research for the National MS Society, and we're talking with Bruce about the MS research projects that have him most excited, why now is the time to write the final chapter in solving the riddle of MS, and how we might even go about preventing people from developing MS. We'll also give you all the details about the MS Society's newly published recommendations for exercise and physical activity for everyone living with MS. And we'll share the new question that you should be asking your neurologist at your next appointment. We'll tell you about this year's recipient of the Dystel Prize for MS research. And you'll hear about a study that looked at the experiences of African-American women with MS.  We have a lot to talk about! Are you ready for RealTalk MS??! National MS Society Publishes Exercise Recommendations for Everyone Living with MS  1:00 Dystel Prize for MS Research Awarded to Dr. Ian Duncan  5:11 The Experiences of African-American Women with MS  6:12 My Interview with Dr. Bruce Bebo  10:07 Share this episode  28:35 The National MS Society COVID-19 Response Fund  29:08 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/142 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us on the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society's Ask An MS Expert Video Replay What You Need to Know About Coronavirus (COVID-19) National MS Society COVID-19 Response Fund Exercise and Lifestyle Physical Activity Recommendations for People with Multiple Sclerosis Throughout the Disease Course The Experience of African-American Women with Multiple Sclerosis Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating & Review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 142 Hosted By: Jon Strum Guests: Dr. Bruce Bebo Tags: MS, MultipleSclerosis, MSResearch, MSActivist, MSSociety, Interferon, Betaseron, Ocrevus, Coronavirus, COVID19, RealTalkMS Privacy Policy

For the past 8 weeks, we've been talking about COVID-19 and MS, but there hasn't been any real data on the effect of COVID-19 on people living with MS. That's finally changed, and we're beginning to see some limited data here in the U.S., as well as data coming out of Italy. My guest is Dr. Robert Shin and we're talking about what the experts are learning from this newly-published data about the effect of COVID-19 on MS. We'll also get into whether someone getting Ocrevus infusions today should be worrying about the effectiveness of a COVID-19 vaccine. We'll talk about the things that people living with MS should be thinking about as our local communities begin to re-open for business. And we'll get into how the COVID-19 pandemic might affect MS care in the future. We're also talking about the new COVID-19 Emergency Food Assistance Program for people living with MS, cancer, and rheumatoid arthritis. We'll tell you about the COVID-19 at-home test kit that received FDA approval last week. It only requires a simple saliva sample, making it a much more user-friendly test. And you'll hear about the MS disease-modifying therapy that may actually help people recover from COVID-19 faster. We have a lot to talk about! Are you ready for RealTalk MS??! COVID-19 & Nursing Homes (...and why I care!)  :21 At-Home COVID-19 Saliva Test Receives FDA Approval  4:43 COVID-19 Emergency Food Assistance Program Available for People Living with MS  6:09 Study Shows MS Medication May be Helpful in Speeding Up Recovery from COVID-19  8:11 My Interview with Dr. Robert Shin  11:13 Share this episode  30:12 The National MS Society COVID-19 Response Fund  30:43 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/141 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us on the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society's Ask An MS Expert Video Replay What You Need to Know About Coronavirus (COVID-19) National MS Society COVID-19 Response Fund COVID-19 Emergency Food Assistance Program Application Triple Combination of Interferon Beta 1b, Lopinavir-Ritonavir, and Ribavirin in the Treatment of Patients Admitted to Hospital with COVID-19: An Open-Label, Randomised, Phase 2 Trial Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating & Review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 141 Hosted By: Jon Strum Guests: Dr. Robert Shin Tags: MS, MultipleSclerosis, MSResearch, MSActivist, MSSociety, Interferon, Betaseron, Ocrevus, Coronavirus, COVID19, RealTalkMS Privacy Policy

My guest is Dr. Elizabeth Crabtree, the Medical Director at the Tulane Center for Comprehensive MS Care. Dr. Crabtree is passionate about creating meaningful care models for patients living with MS. And this week, we're taking a deep dive with Dr. Crabtree into the impact of nutrition, diet, and vitamins in managing MS symptoms. We're also going to get into the impact of stress on MS, and Dr. Crabtree will even share some tips on how to best manage that stress. We're also talking about a new mouse study that suggests starting treatment with Rituximab in people who are at risk of developing MS or in MS patients before they develop any motor symptoms may be a way to avoid inflammation and myelin loss, and actually prevent MS from further developing.  We'll tell you about a new nanosensor that can diagnose MS with 97% accuracy before symptoms even develop. We'll share new data that shows Mayzent slowed physical disability progression and provided cognitive benefits to people with secondary progressive MS. And you'll hear about the study that shows that early use of Ocrevus may lower the need for a walking aid by 49% over 6 years. We have a lot to talk about! Are you ready for RealTalk MS??! A Fun Fact About Podcasts (...and a Thank You!)  :23 Mouse Study Suggests Early Treatment with Rituximab May Prevent MS Symptoms From Developing  2:58 Nanosensor Can Diagnose Early Stage MS Before Symptoms Develop  5:18 New Data Shows Mayzent Slows Disability Progression & Provides Cognitive Benefits to People with Secondary Progressive MS  8:03 Study Shows Early Use of Ocrevus May Lower the Need for Walking Aid by 49% Over 6 Years   10:42 My Interview with Dr. Elizabeth Crabtree  13:33 Share this episode  28:50 The National MS Society COVID-19 Response Fund  29:25 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/140 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us on the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Give RealTalk MS a Rating & Review National MS Society's Ask An MS Expert Video Replay What You Need to Know About Coronavirus (COVID-19) National MS Society COVID-19 Response Fund Rituximab Prevents the Development of Experimental Autoimmune Encephalomyelitis (EAE): Comparison with Prophylactic, Therapeutic, or Combinational Regimens Nanoimmunosensor Based on Atomic Force Spectroscopy to Detect Anti-Myelin Basic Protein Related to Early-Stage Multiple Sclerosis Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating & Review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 140 Hosted By: Jon Strum Guests: Dr. Elizabeth Crabtree Tags: MS, MultipleSclerosis, MSResearch, MSActivist, MSSociety, Rituximab, Ocrevus, Coronavirus, COVID19, RealTalkMS Privacy Policy

Important Listening Nothing in this, or any other episode, constitutes medical advice, Also, a quick summary of the latest Covid advice for people with MS   Copyright: Bron Webster 2020

Multiple Sclerosis News Today columnist, Jenn Powell discusses accepted applications for shortened infusion time of Ocrevus in both US and Europe. Are you interested in learning more about Multiple Sclerosis? If so, please visit https://multiplesclerosisnewstoday.com/

This week, we're going to hear from 3 experts on very different aspects of COVID-19 and MS. Kathy Costello, the Associate Vice-President of Healthcare Access for the National Multiple Sclerosis Society is going to give us our weekly update on COVID-19 and MS. Mandy Rohrig, a physical therapist who specializes in the rehabilitation of people with Multiple Sclerosis and Parkinson’s disease. is going to talk to us about exercises that you can do at home to stay healthy. And then you'll meet Nancy Guerrera. Nancy is a registered nurse who was diagnosed with MS in 2007. And last month, Nancy was diagnosed with COVID-19. We'll hear exactly what it's been like for someone living with MS to contract COVID-19 after being on Ocrevus for the past 3 years. We have a lot to talk about! Are you ready for RealTalk MS??! A Social Media Post That Got It Wrong  :22 COVID-19 & MS Update with Kathy Costello  4:52 Exercising at Home to Stay Healthy with Mandy Rohrig    14:12 Living with MS & Diagnosed with COVID-19: My Interview with Nancy Guerrera  23:32 Share this episode  38:09 Donate to Walk-MS  38:39 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/139 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us on the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Give RealTalk MS a Rating & Review National MS Society's Ask An MS Expert Video Replay What You Need to Know About Coronavirus (COVID-19) Join the RealTalk MS Facebook Group Jon's WALK-MS Fundraising Page Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating & Review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 139 Hosted By: Jon Strum Guests: Kathy Costello, Mandy Rohrig, and Nancy Guerrera Tags: MS, MultipleSclerosis, MSResearch, MSActivist, MSSociety, Ocrevus, Coronavirus, COVID19, RealTalkMS Privacy Policy

This week, and for the foreseeable future, we're committed to sharing the most updated and reliable information on COVID-19 and MS. Returning as my guest on the podcast is Dr. Mitzi Joi Williams. Dr. Williams is a Board-Certified Neurologist and Fellowship trained Multiple Sclerosis Specialist who is passionate about educating and empowering people affected by MS to understand the disease process and the goals of treatment. She is a sought-after consultant, speaker, researcher, and author with expertise in understanding MS in underserved and ethnic minority populations. Dr. Williams is giving us our weekly update on what we're learning about COVID-19 & MS. We're talking about COVID-19 and starting, stopping, or pausing disease-modifying therapies. And we're taking a closer at how COVID-19 is impacting minority populations and how MS itself impacts minority populations differently. We'll tell you everything you need to know about COVID-19 tests, COVID-19 antibody tests, and those shady COVID-19 at-home test kits. We'll also tell you about how some MS clinical trials are being paused, and what that means when it comes to the availability of new disease-modifying therapies. And we'll tell you about a study that shows that ethnicity is not a factor in predicting cognitive impairment in early MS. But the study may have inadvertently highlighted an unfortunate reality in our society. We have a lot to talk about! Are you ready for RealTalk MS??! The Best Email Ever  :35 Everything You Need to Know About COVID-19 Tests  3:36 Atara Biotherapeutics Pauses ATA 188 Clinical Trial for PPMS and SPMS    8:34 Study Shows Cognitive Impairment in Early MS Not Linked to Ethnicity  11:22 My Interview with Dr. Mitzi Joi Williams  15:50 Share this episode  31:11 Donate to Walk-MS  21:43 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/138 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us on the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Give RealTalk MS a Rating & Review National MS Society's Ask An MS Expert Video Replay What You Need to Know About Coronavirus (COVID-19) Race, Ethnicity, and Cognition in Persons Newly Diagnosed with Multiple Sclerosis The RealTalk MS Facebook Group Jon's WALK-MS Fundraising Page Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating & Review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 138 Hosted By: Jon Strum Guests: Dr. Mitzi Joi Williams Tags: MS, MultipleSclerosis, MSResearch, MSActivist, MSSociety, Ocrevus, Coronavirus, COVID19, RealTalkMS Privacy Policy

This week, and for the foreseeable future, we're committed to sharing the most updated and reliable information on COVID-19 and MS. Joining me as my guest is Dr. Tanuja Chitnis, a board-certified neurologist specializing in multiple sclerosis, with a dual appointment at the Brigham and Women’s Hospital and Massachusetts General Hospital in Boston. Dr. Chitnis is a Professor of Neurology at Harvard Medical School and a Senior Scientist at the Ann Romney Center for Neurologic Diseases at Brigham & Women’s Hospital, where Dr. Chitnis created the Translational Neuroimmunology Research Center, which is focused on bringing bench discoveries to clinical trials for multiple sclerosis and related diseases. Dr. Chitnis serves on the advisory boards and steering committees of several MS-related organizations, including the National MS Society’s Medical Advisory Committee, and she’s written more than 200 publications and reviews related to multiple sclerosis. We're discussing who, among everyone living with MS, is immunocompromised and who isn't -- and why that matters when it comes to being susceptible to COVID-19. We're talking about whether pandemic-related stress can lead to an MS relapse. And we'll look at the outcomes of MS patients who have already contracted COVID-19. We'll remind you about the value of a fact, and why credible information from reliable sources is so critical right now. And we'll connect you to the video replay of last Friday's Ask An MS Expert webinar.  (I hope you already consider these weekly webinars with leading MS experts answering your questions to be "can't miss" viewing.) We'll also tell you about a new North American MS/COVID-19 patient registry for healthcare professionals that will help define best treatment strategies and best patient outcomes for people living with MS who contract COVID-19 in the future. And now that we all have a bit more time on our hands during the day, we have some suggestions for how you can constructively spend some of that time, including: Taking the University of Washington MS Rehabilitation & Wellness Research Center's online survey Taking the Massachusettes General Hospital online survey Getting involved in iConquer MS patient-powered research ...and, if you happen to be using an iPhone, even giving RealTalk MS a rating & review! We have a lot to talk about! Are you ready for RealTalk MS??! Check out Episode 4 of the National MS Society's Ask an MS Expert Webinar Series  :56 The Value of Facts in a Time of Uncertainty  2:36 UW MS Rehabilitation & Wellness Research Center COVID-19 Survey   4:54 iConquer MS COVID-19 Survey  5:35 National MS Society & Consortium of Multiple Sclerosis Centers Launch COViMS North American Registry  6:41 Have a Minute? Get In Touch!  8:36 My Interview with Dr. Tanuja Chitnis  11:03 Share this episode  20:14 Donate to Walk-MS  20:45 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/137 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us on the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Give RealTalk MS a Rating & Review National MS Society's Ask An MS Expert Video Replay What You Need to Know About Coronavirus (COVID-19) Federal Coronavirus Response and Economic Stimulus Information University of Washington COVID-19 Online Survey iConquer MS COVID-19 Online Survey The RealTalk MS Facebook Group Jon's WALK-MS Fundraising Page Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating & Review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 137 Hosted By: Jon Strum Guests: Dr. Tanuja Chitnis Tags: MS, MultipleSclerosis, MSResearch, MSActivist, MSSociety, Ocrevus, Coronavirus, COVID19, RealTalkMS Privacy Policy

Welcome to a special episode of RealTalk MS coming to you from Day Two of ECTRIMS 2019 in Stockholm, Sweden. ECTRIMS is an acronym that stands for the European Conference for Treatment & Research in Multiple Sclerosis, and this annual scientific congress is the largest MS research conference in the world. There are over 9,000 attendees here from more than 100 different countries to share new information, hear research updates, and get face to face with the leading MS researchers in the world.  We're talking about stem cell therapy, the long-term outcomes of MS, new data about Ocrevus, the importance of managing comorbidities, and a new global initiative that puts the voice of people living with MS at the center of MS research and MS care.   We have a lot to talk about. Welcome to ECTRIMS 2019! ___________ LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Give RealTalk MS a Rating & Review  ECTRIMS 2019 Scientific Programme Download the RealTalk MS App for iOS Download the RealTalk MS App for Android ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS ECTRIMS Day 2 Hosted By: Jon Strum Tags: MS, MultipleSclerosis, ECTRIMS2019, EMDSerono, Stemcells, PROMS, RealTalkMS

In this episode of The MS Gym Podcast, the host becomes the guest, when comedic actor and MSr, Damian Washington, interviews Brooke Slick about HSCT (hematopoietic stem cell transplant) for MS. Brooke, a 6+ year veteran of the treatment, explains what HSCT is, how it works, who it's for, where you can get it done and why it's currently considered your best chance at halting your disease progression. In addition to this podcast episode, starting next week, you will be able to hear portions of this interview on Damian Washington's weekly YouTube vlog (link below) where he chronicles his journey with MS and Ocrevus as  well as discusses a plethora of MS lifestyle topics. It's important to note that although HSCT has continued to gain exposure recently, the MS Gym was way ahead of the game when over 2 years ago, Coach Trevor Wicken designed a 30-day "Rebuild" program that's designed specifically for HSCT veterans and available in the membership. EPISODE NOTES: - What is HSCT? - The logistics of HSCT - The role stem cells play in HSCT? - The two types of HSCT protocols - It's all about the chemotherapy - Safety precautions after HSCT - Symptomatic improvements - Criteria for acceptance - What is EDSS and why it matters? - DMDs slow disease progression. HSCT halts disease progression. - How long should you wait to get HSCT? - Recovery & expectations - Statistics/success rates - Does insurance cover it? - The cost - Mortality rates - The best online resources for HSCT information Damian Washington's Weekly Vlog on Multiple Sclerosis: https://www.youtube.com/user/DigitalRidiculous Brooke Slick - https://brookeslick.com/ The MS Gym - http//www.themsgym.com/ HSCT Resources: General HSCT Facebook Group https://www.facebook.com/groups/hsctworldwide/ Russia HSCT Facebook Group https://www.facebook.com/groups/404629779644453/ Mexico HSCT Facebook Group https://www.facebook.com/groups/mexicohsct/

In this week's Teaching through Clinical Cases, Dr. Olga Rosenveld Thon (Drexel) walks us through the challenging management decisions that emerge in the care of women with demyelinating disease. Why are women prone to multiple sclerosis? How do pregnancy, breastfeeding, and menopause influence the disease course--and should these events alter the course of their therapy? Produced by James E. Siegler and Olga Thon. Music courtesy of Cellophane Sam, Chris Zabriskie, Jon Watts, Kai Engel, and Lee Rosevere. Sound effects by Mike Koenig and Daniel Simion. BrainWaves' podcasts and online content are intended for medical education only and should not be used for clinical decision making. Be sure to follow us on Twitter @brainwavesaudio for the latest updates to the podcast. DISCLOSURES Dr. Rosenveld Thon reports relevant financial interests in Ocrevus, as a consultant. REFERENCES Michel L, Foucher Y, Vukusic S, Confavreux C, de Seze J, Brassat D, Clanet M, Clavelou P, Ouallet JC, Brochet B, Pelletier J, Labauge P, Lebrun C, Lepage E, Le Frere F, Jacq-Foucher M, Barriere P, Wiertlewski S, Laplaud DA and Club Francophone de la Sclerose En P. Increased risk of multiple sclerosis relapse after in vitro fertilisation. Journal of neurology, neurosurgery, and psychiatry. 2012;83:796-802. Nielsen NM, Westergaard T, Rostgaard K, Frisch M, Hjalgrim H, Wohlfahrt J, Koch-Henriksen N and Melbye M. Familial risk of multiple sclerosis: a nationwide cohort study. American journal of epidemiology. 2005;162:774-8. Confavreux C, Hutchinson M, Hours MM, Cortinovis-Tourniaire P and Moreau T. Rate of pregnancy-related relapse in multiple sclerosis. Pregnancy in Multiple Sclerosis Group. The New England journal of medicine. 1998;339:285-91. Bove R and Chitnis T. The role of gender and sex hormones in determining the onset and outcome of multiple sclerosis. Multiple sclerosis. 2014;20:520-6. Bove R. Women's Issues in Multiple Sclerosis. Semin Neurol. 2016;36:154-62. Rankin K and Bove R. Caring for Women with Multiple Sclerosis Across the Lifespan. Current neurology and neuroscience reports. 2018;18:36. Ramagopalan SV, Dobson R, Meier UC and Giovannoni G. Multiple sclerosis: risk factors, prodromes, and potential causal pathways. The Lancet Neurology. 2010;9:727-39. Correale J, Farez MF and Ysrraelit MC. Increase in multiple sclerosis activity after assisted reproduction technology. Annals of neurology. 2012;72:682-94. Bove R, Chitnis T and Houtchens M. Menopause in multiple sclerosis: therapeutic considerations. Journal of neurology. 2014;261:1257-68.

Thank you for joining us for our 2nd Cabral HouseCall of the weekend! I’m looking forward to sharing with you some of our community’s questions that have come in over the past few weeks… Let’s get started!    Vanessa: Thank you for all of the information you put out, quick and to the point. So my issue is that the palms of my hands and bottom of my feet are severely dry and cracked. It gets to where my heels crack so bad that my heel splits apart and hurts. My finger tips do the same thing. Although my primary says its just dry skin I feel as though there is something deeper, an imbalance. Quick history, I was diagnosed with MS and am on Ocrevus. I take a multi, mag citrate, Omega-3 and EPA, probiotics, gabapentin, I use Great Lakes collagen everyday and drink more coffee than I should. I do wash my hands (regular soap, NOT antibacterial) a lot since I am cooking and cleaning constantly (Stay-at-home mom :) ) and use lotion as often as possible but nothing lasts. I do have a moderate amount of stress with a soldier for a husband (lots of training and deployments). Could the dry and cracked palms and heels be connected with an imbalance? If so, what should I do and what testing category would this fall under on your site? Thanks so much and keep serving those in need of healing! Emily: Hi Dr. Cabral, First, I just want to say thank you! I love listening to your podcast and appreciate all of the knowledge you share. I’m curious what your thoughts are on heat/sun rash and sun sensitivity. I’m 32, Caucasian, female and have always been okay in the sun up until about 5 years ago. Now when I am in the sun, I tend to develop a rash on my hands and feet. My face also becomes extremely sensitive. When exposed to the sun I tend to breakout and will develop multiple (12-15) tiny pustule pimples all over my chin and cheeks and they feel very irritated. I do suffer from acne in general, it’s under control for the most part with food and lifestyle changes but the moment my skin sees sun, it flares up and becomes so irritated. This is with clean sunscreen as well. I am pretty fare skinned and I know my Irish grandmother is sensitive to the sun as well, but why now? I never used to have this issue and was always fine with sunscreen. Could it be a detox issue? Any advice or insight would be greatly appreciated! Thank you In advance for your help!!! Brennan: Hi Dr. Cabral- First off thank you so much for all you do and your endless information and education. I am continually impressed by your knowledge and passion for health and living our best lives! I am considering your integrative health practitioner courses to add to my nursing degree. A quick bit of background. I consider myself to be a pretty healthy individual. I am a 34 year old female. I am 5'1 and weigh 103 lbs. I am very active and have been my whole life. I am a former collegiate soccer player and since college I have gotten into crossfit, I love to push myself and it hasnt been until about a year ago when I started to have strange symptoms that I realized I needed to take a step back and incorporate more balance into my life... i've since added yoga weekly, the sauna 4-6 days a week, treadmill workouts, hitt classes, meditation, and have even done some acupuncture.nI have never considered myself an anxious person and have always been a great sleeper until the last 6 months. I have been waking up in the middle of the night most nights and it takes me at least an hour or 2 to get back to sleep. For the last 3 months I have had a strange feeling in my head, almost a light headed feeling, hard to focus, memory lapsing, and pretty bad fatigue. I haven't had 1 day in 3 months that I have been free of these symptoms. I just completed your 21 day detox and although I feel better my symptoms are still present. just maybe not as extreme. I am so confused as to what to do next... Ive had lots of thoughts. Maybe its lack of sound sleep. Maybe it has something to do with mold (although I dont know where I would have been exposed), maybe bacterial and yeast overgrowth in the gut, maybe hormonal... the list goes on :) I would love any and all suggestions you have for me! Thank you so much.Brennan Erin: Hi, has Dr Cabral ever successfully treated anyone with high grade HPV Virus? Thankyou Sarah: What are your thoughts on Juice Plus vitamins and supplements for kids? My kids won’t drink smoothies at 2, but will chew the gummy vitamins from Juice Plus. I feel like it’s a good choice until I can get them to drink a smoothie and add your supplements appropriate for their age. Would love to know your thoughts. Thank you for all you do! Erica: My husband and I will be traveling in Argentina and Brazil at the end of the year. My question is twofold: What can we do in the days and weeks leading up to the trip to travel and arrive there in the best health possible? What are some supplements, vitamins, etc that would be most essential to bring to keep ourselves healthy while traveling for 6 weeks? (Space is an issue with packing) Thank you so much for sharing so much helpful information.   Thank you for tuning into this weekend’s Cabral HouseCalls and be sure to check back tomorrow for our Mindset & Motivation Monday show to get your week started off right! - - - Show Notes & Resources:  http://StephenCabral.com/1227 - - - Dr. Cabral's New Book, The Rain Barrel Effect https://amzn.to/2H0W7Ge - - - Join the Community & Get Your Questions Answered: http://CabralSupportGroup.com - - -   Dr. Cabral’s Most Popular Supplements: > “The Dr. Cabral Daily Protocol” (This is what Dr. Cabral does every day!) - - - > Dr. Cabral Detox  (The fastest way to get well, lose weight, and feel great!) - - - > Daily Nutritional Support Shake  (#1 “All-in-One recommendation in my practice) - - - > Daily Fruit & Vegetables Blend  (22 organic fruit & vegetables “greens powder”) - - - > CBD Oil  (Full-spectrum, 3rd part-tested & organically grown) - - - > Candida/Bacterial Overgrowth, Leaky Gut, Parasite & Speciality Supplement Packages - - - > See All Supplements: https://equilibriumnutrition.com/collections/supplements  - - -   Dr. Cabral’s Most Popular At-Home Lab Tests: > Hair Tissue Mineral Analysis (Test for mineral imbalances & heavy metal toxicity) - - - > Organic Acids Test (Test for 75 biomarkers including yeast & bacterial gut overgrowth, as well as vitamin levels) - - - > Thyroid + Adrenal + Hormone Test  (Discover your complete thyroid, adrenal, hormone, vitamin D & insulin levels) - - - > Adrenal + Hormone Test (Run your adrenal & hormone levels) - - - > Food Sensitivity Test (Find out your hidden food sensitivities) - - - > Omega-3 Test (Discover your levels of inflammation related to your omega-6 to omega-3 levels) - - - > Stool Test (Use this test to uncover any bacterial, h. Pylori, or parasite overgrowth) - - - > Genetic Test (Use the #1 lab test to unlocking your DNA and what it means in terms of wellness, weight loss & anti-aging) - - - > Dr. Cabral’s “Big 5” Lab Tests (This package includes the 5 labs Dr. Cabral recommends all people run in his private practice) - - - > View all Functional Medicine lab tests (View all Functional Medicine lab tests you can do right at home for you and your family)

I get a lot of listener questions about exercise and MS. And a lot of those questions come from people living with progressive MS, wondering whether the conversation about physical activity and MS applies to them.   My guest this week is Dr. Lara Pilutti,  an expert in the role of exercise in the management and treatment of disability arising from multiple sclerosis. We're talking about how you want to be thinking about exercise and why you want to be thinking about exercise, whether you're living with relapsing-remitting MS or progressive MS. We're also talking about this year's winner of the Dystel Prize for MS Research. We'll tell you about the long overdue approval of Ocrevus to treat early primary progressive MS in the U.K. You'll hear about the French research team that has found a connection between ancient retroviruses and MS. And we'll tell you about legislation introduced in Congress that's supposed to protect people with pre-existing conditions...but doesn't! We have a lot to talk about. Are you ready for RealTalk MS??! Now You Can Find RealTalk MS on Pandora  :53 Download the Free RealTalk MS App  1:18 You Can Be My Special Guest on RealTalk MS Episode #100   2:09 Dystel Prize for MS Research Awarded to Dr. Anne Cross  4:17 Ocrevus (Finally!) Approved in the U.K. for Treatment of Early Primary Progressive MS  6:10 Researchers Find a Connection Between Ancient Retroviruses and MS  7:12 Republican Legislators Introduce Bills That Protect People with Pre-Existing Conditions...Or Do They???!  8:25 My Interview with Dr. Lara Pilutti  14:53 ___________ ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.comPhone: (310) 526-2283 ___________ LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Be My Guest on RealTalk MS Episode #100 Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating & Review  ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 89 Hosted By: Jon Strum Guest: Dr. Lara Pilutti Tags: MS, MultipleSclerosis, MSResearch, MSSociety, Ocrevus, ProtectOurCare, Caregiving, RealTalkMS

My third infusion of ocrevus. Just sharing how tired I feel and I itchy throat. --- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app Support this podcast: https://anchor.fm/agilliam3yahoocom/support

The logistics involved in traveling can be cumbersome, and that's twice as true if you're living with MS. Mobility issues and other special requirements can make travel challenging. But whether you're out exploring the world or just checking into a local hotel for a pampered staycation, travel can add so much to your quality of life. My guest on the podcast is Tarita Davenock. It's been 20 years since Tarita's MS diagnosis. And today, Tarita is the CEO of Travel For All, a travel agency that embraces the philosophy that travel should be inclusive, and not exclusive.       Last week, a federal judge declared the Affordable Care Act to be unconstitutional, and we're talking about what that means for people living with MS. We'll share some newly published results of a stem cell therapy clinical trial, we'll tell you about a study that demonstrates how exercise improves myelin repair in the mouse model of MS, and we'll tell you about CanProCo, a large MS research project just getting underway in Canada.    Jon and RealTalk MS were featured in last week's Causepods podcast. We'll tell you what that's all about, and how Causepods has created a way for you to support the National MS Society.   We have a lot to talk about! Are you ready for RealTalk MS?! ___________ The Affordable Care Act Was Ruled Unconstitutional -- What This Means for People Living with MS   2:11 RealTalk MS Is Featured on the CausePods Podcast  6:33 Encouraging Results From Stem Cell Therapy Study, But Questions Still Need To Be Answered  8:18 Ocrevus Approved for Treating Relapsing-Remitting MS in Scotland  10:53 Exercise Promotes Myelin Repair in Mouse Model of MS  12:07 The Canadian Proactive Cohort Study for People Living with MS Will Study 1,000 Canadians Living with MS   14:02 My Interview with Travel For All CEO, Tarita Davenock  16:37 ___________ LINKSIf your podcast app doesn’t allow you to click on these links, you’ll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Download the RealTalk MS App for iOS Download the RealTalk MS App for Android National Patient Groups Denounce District Court Ruling Overturning Health Care Law Jon Strum & RealTalk MS on the Causepods Podcast GoFundMe Page Benefiting The National MS Society Prospective Phase II Clinical Trial of Autologous Hematopoietic Stem Cell Transplant for Treatment Refractory Multiple Sclerosis Multimodal Enhancement of Remyelination by Exercise with a Pivotal Role for Oligodendroglial PGC1a Travel For All Give RealTalk MS a Rating & Review ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 69 Hosted By: Jon Strum Guest: Tarita Davenock Tags: MS, MultipleSclerosis, MS, RealTalkMS, TravelForAll, ACA, ProtectOurCare, MSActivist, HSCT, Ocrevus, CanProCo, MSSocietyCanada, Causepods

Caregiving carries a lot of challenges. And for some people, it can feel overwhelming. So, what are the things that make being a caregiver for someone living with a chronic illness like MS so challenging?   We're kicking off National Family Caregivers Month with my guest, Dr. Amy Sullivan, Director of Behavioral Medicine, Research and Training at the Mellen Center for Multiple Sclerosis at the Cleveland Clinic, and we're talking about how to best navigate some of the challenges that go along with being a caregiver for someone living with MS.      We're also talking about today's election in the U.S., and what it means for people living MS, the unresolved status of Ocrevus as a treatment for primary progressive MS in the UK, and the fast-tracking of Mavenclad in the UK. We'll tell you about the bus driver who stood up for a man with MS, an insurance company that will fly people to Mexico and pay a cash bonus to buy their MS prescription medication there, and we'll share results from the Embracing Carers International Survey.   We have a lot to talk about! Are you ready for RealTalk MS?! ___________ It's Election Day in the U.S. (and what that means to people living with MS!)  :22 The Bus Driver Who Stood Up for a Man with MS  2:49 An Insurer Will Fly People with MS to Mexico to Buy Their Prescription Drugs  4:00 Ocrevus On Hold for People with Primary Progressive MS in the UK  5:49 Mavenclad Fast-Tracked in the UK  7:59 Embracing Carers Campaign & Can Do MS Announce a New Collaboration   9:42  Embracing Carers International Survey Results  10:52 Interview with Dr. Amy Sullivan  12:55 ___________ LINKSIf your podcast app doesn’t allow you to click on these links, you’ll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Download the RealTalk MS App for iOS Download the RealTalk MS App for Android RealTalk MS Congressional Report Card CanDo-MS Embracing Carers Program Recommendations for Cognitive Screening and Management in Multiple Sclerosis Care Give RealTalk MS a Rating & Review ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 63 Hosted By: Jon Strum Guest: Dr. Amy Sullivan Tags: MS, MultipleSclerosis, MSActivist, DrAmyBSullivan, ClevelandClinic, Caregiving, Caregiver, Ocrevus, Mavenclad, EMDSerono, EmbracingCarers, CanDoMS, RealTalkMS

I spent this past weekend attending the iConquer MS Leadership Summit in Boston. iConquer MS is a people-powered research network created by the Accelerated Cure Project for MS. Instead of just asking people with MS to provide data, iConquer MS is driven by people living with MS, and it represents a new paradigm of building collaborative partnerships to solve big healthcare questions. This past spring, I had an in-depth conversation with Dr. Robert McBurney, CEO of the Accelerated Cure Project for MS, and David Gwynne, who heads up their Alliances & Collaborations. We'll revisit that conversation, and I'll also give you my thoughts on the remarkable iConquer MS Leadership Summit. We're also talking about the shocking decision in the UK to withhold Ocrevus as a treatment for Primary Progressive MS, the MS In America 2017 survey results, and I'll tell you about a couple of excellent webinars that you should be sure to check out. We have a lot to talk about! Are you ready for RealTalk MS? ___________ NICE Rejects Ocrevus for PPMS in the UK  1:06 MS In America Survey Results Provide Surprising Insights  4:20 Upcoming Webinars from Can-Do MS  7:40 iConquer MS Leadership Summit  9:49 Interview with Dr. Robert McBurney & David Gwynne  13:09 ___________ LINKSIf your podcast app doesn’t show these links, you’ll find them in the show notes at www.RealTalkMS.com Petition to Make Ocrevus Available for People with PPMS in the UK Relapse Prevalence, Symptoms, and Health Care Engagement: Patient Insights from the Multiple Sclerosis in America 2017 Survey Can-Do MS Webinar Series iConquer MS Accelerated Cure Project for MS Give RealTalk MS a Rating & Review ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 53 Hosted By: Jon Strum Guests: Dr. Robert McBurney & David Gwynne Tags: MS, MultipleSclerosis, Ocrevus, iConquerMS, CanDoMS,  RealTalkMS  

MS Research Australia has published a report titled, Health Economic Impact of Multiple Sclerosis in Australia 2017. The report provides a detailed snapshot of the economics behind MS, looking at employment, quality of life issues, and even calculating the cost per person living with MS in Australia. The report concludes with some powerful recommendations for future steps.   My guest is Dr. Lisa Melton, Head of Research at MS Research Australia, and we're talking about what this report is telling us, what it's recommending, and how we transition those recommendations into actionable steps.   We're also talking about some good news for people living with progressive MS -- the extremely positive outcome of the Phase 2 clinical trial for Ibudilast. We'll tell you about a couple of upcoming educational webinars about Ocrevus and primary progressive MS, and Ocrevus and relapsing remitting MS. We'll update you on the latest news about Phase 2 clinical trials for cannabis-based medications to treat MS, you'll get a heads-up about a very sneaky (and very dangerous) piece of legislation that is potentially devastating to people living with MS in the U.S., and we'll tell you how you can catch an online video of last week's Progress in MS Research: Live Update 2018 presentation in Australia. We have a lot to talk about! Are you ready for RealTalk MS? ___________ Ibudilast Clinical Trial Shows Unprecedented Slowing in Brain Atrophy in Progressive MS  1:11 Upcoming Ocrevus Educational Webinars  3:17 MMJ Intl Asks FDA to Approve Cannabis-MS Study  4:22 Pre-Existing Conditions Bill is Healthcare Wolf in Sheep's Clothing  5:34 Progress in MS Research Lie Update 2018  11:33 Interview with Dr. Lisa Melton 12:30 ___________ LINKSIf your podcast app doesn’t show these links, you’ll find them in the show notes at www.RealTalkMS.com Phase 2 Trial of Ibudilast in Progressive Multiple Sclerosis Upcoming Ocrevus webinars Legal Brief Filed in U.S. District Court by the National MS Society, American Cancer Society, the American Diabetes Association, the American Heart Association, and the American Lung Association Ensuring Coverage for Patients with Pre-Existing Conditions Act Video: Progress in MS Research Live Update 2018 Report: Health Economic Impact of Multiple Sclerosis in Australia 2017 Give RealTalk MS a Rating & Review ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 51 Hosted By: Jon Strum Guest: Dr. Lisa Melton Tags: MS, MultipleSclerosis, MSResearch, MSResearchAustralia, Ibudilast, ClevelandClinic, CleClinicNews, Ocrevus, Cannabis, MMJInternational, PreExistingConditions, Prexxatstake, RealTalkMS

Using cannabis to treat MS symptoms has become a hot topic. And thanks to social media, a lot of opinions about cannabis and MS are posted as if they're facts...and that's not always the case. So, we're talking about cannabis and MS in this episode of RealTalk MS. We'll try to demystify it a bit and we'll give you an idea of what some of the research is telling us. We'll talk about which MS symptoms cannabis might be good for...and which ones it might not be good for.     We're also talking about the latest reason that your health insurance premium is likely to rise in 2019 in the U.S., we'll walk you through "Clinical Trials 101" and explain what each phase of a clinical trial is really all about, and we'll give you the latest update on Ocrevus being rejected as a treatment for PPMS in the U.K. We have a lot to talk about! Are you ready for RealTalk MS? ____________ U.S. Suspends Payments to Health Insurers  1:47 Everything You Always Wanted To Know About Clinical Trials  8:25 Clinical Trial to Track Urinary Symptoms in MS Is Recruiting Participants  15:05 NICE Rejects Ocrevus for PPMS  16:47 Cannabis & MS  19:04 ___________ LINKSIf your podcast app doesn’t show these links, you’ll find them in the show notes at www.RealTalkMS.com U.S. Suspends Payments to Health Insurers Become an MS Activist National MS Society Brochure on Participating in a Clinical Trial ClinicalTrials.gov Sample Urinary Symptoms & MS Clinical Trial Survey Cannabis Use in People with Parkinson's Disease and Multiple Sclerosis: A Web-Based Investigation National MS Society Research Paper on Cannabis & MS AAN Guidelines for Medical Marijuana Real World Experience of Medical Marijuana in Symptomatic Management of Multiple Sclerosis and Transverse Myelitis Cannabidiol to Improve Mobility in People with MS Knowledge and Attitudes of Australian General Practitioners Towards Medicinal Cannabis: A Cross-Sectional Survey Give RealTalk MS a Rating & Review ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 43 Hosted By: Jon Strum Tags: MS, MultipleSclerosis, MSResearch, Ocrevus, ACA, ProtectOurCare, MSActivist, CannabisandMS, Cannabis, RealTalkMS

When you google the phrase "stem cell therapy for MS", it can feel like you fell into a black hole of conflicting information, misinformation, and dodgy information that can be full of promises designed to speak directly to someone who is anxiously and sometimes desperately looking for a miracle cure for a debilitating condition. And there's also plenty of good, credible information available online. But how do you go about separating the wheat from the chaff? We're going to try to jump start that process for you in this podcast episode, as we look at the current state of stem cell therapy & MS. We're also discussing the latest news about Ocrevus, medical cannabis for MS, a clinical trial that's recruiting 900 people recently diagnosed with relapsing-remitting MS, a couple of new apps to help you manage MS, and a webinar about maintaining your independence with progressive MS. We have a lot to talk about! Are you ready for RealTalk MS? ____________ U.K. Approves Ocrevus for RRMS  2:12 MMJ Bioscience Seeks FDA Approval for Cannabis Phase II Clinical Trial  3:48 Biogen Adds MS & Cognition Resource Center to MyMSTeam  5:20 Biogen Releases Aby, an App for People Living with MS  6:30 Nationwide Clinical Trial Recruiting People Newly Diagnosed with MS  9:10 Roche & EAN Produces "Maintaining Independence in Progressive MS" Webinar  11:08 Stem Cell Therapy & MS  12:38 ___________ LINKSIf your podcast app doesn’t show these links, you’ll find them in the show notes at www.RealTalkMS.com MyMSTeam TREAT-MS Clinical Trial MS Society Brochure on Participating in a Clinical Trial Maintaining Independence in Progressive MS Webinar MS Society: Stem Cells in MS ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 42 Hosted By: Jon Strum Tags: MS, MultipleSclerosis, MSResearch, Ocrevus, MyMSTeam, Biogen, Aby, HopkinsMedicine, ProgressiveMS, HSCT, RealTalkMS