Podcasts about hidradenitis suppurativa hs

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Best podcasts about hidradenitis suppurativa hs

Latest podcast episodes about hidradenitis suppurativa hs

The Healthy Skin Show
385: Hidradenitis Suppurativa Diet: Can It Really Stop The Painful Skin Boils?

The Healthy Skin Show

Play Episode Listen Later May 15, 2025 31:16


Calling all Hidradenitis Suppurativa (HS) warriors – if you've wondered whether diet changes could help. The short answer? It might. While diet alone won't be a cure-all, many people have seen fewer flares and less pain by making specific changes.In this episode, I'm breaking down what we do know about the Hidradenitis Suppurativa diet connection, what's still unclear, and how you can start experimenting with a diet for HS without getting overwhelmed.⭐️Mentioned in This Episode:- Master + optimize your liver detox

The Future of Dermatology
Episode 78 - Revolutionizing HS Treatment with Lasers | The Future of Dermatology Podcast

The Future of Dermatology

Play Episode Listen Later Mar 18, 2025 12:02


Summary In this episode of the Future of Dermatology podcast, we hear from Dr. Akhil Wadhera, about the innovative use of lasers in treating Hidradenitis Suppurativa (HS), from his session at SF Derm Annual Meeting in 2024 . Dr. Wadhera highlights the significant impact of HS on patients' quality of life and explores the advantages of laser hair removal as a treatment option. He shares clinical evidence supporting the effectiveness of laser treatments and emphasizes the importance of integrating these technologies into dermatological practices for improved patient outcomes. Takeaways Lasers can significantly improve the management of HS. HS is a debilitating condition with a high financial burden. Laser hair removal is a viable treatment for HS. Patients report high satisfaction with laser treatments. Clinical studies show promising results for laser hair removal in HS. Integrating lasers into dermatology can enhance patient care. The mechanism of laser hair removal targets inflammation and hair follicles. Long-term treatment can lead to sustained improvements in HS. Collaboration among dermatologists is key to advancing treatment options. Continued research is essential for optimizing laser therapies. Chapters 00:00 - Introduction to the Future of Dermatology Podcast 01:16 - Exploring Lasers in Dermatology 02:46 - The Impact of Hidradenitis Suppurativa (HS) 04:48 - Mechanisms and Benefits of Laser Hair Removal 06:39 - Clinical Evidence and Patient Outcomes 09:26 - Conclusion and Future Directions in HS Treatment

The Future of Dermatology
Episode 76 - HS Management Insights from SF Derm Society 2024 Annual Meeting | The Future of Dermatology Podcast

The Future of Dermatology

Play Episode Listen Later Mar 4, 2025 12:42


Summary In this episode of the Future of Dermatology podcast, we revisit the SF Derm 2024 Annual meeting and hear from Dr. Haley Naik, MD, as she discusses the management of Hidradenitis Suppurativa (HS). Dr. Naik covers the importance of controlling inflammation with medical therapies, the role of biologics in treatment, and the clinical pearls for using TNF inhibitors effectively. She emphasizes the need for early intervention to prevent permanent disfigurement and the importance of optimizing medical management before considering surgical options. Takeaways Using medical therapies to control inflammation is crucial. When to start a biologic is a common question. Preventing permanent disfigurement is a key goal. Adalimumab was the first FDA approved drug for HS. Real world goals include reducing pain and symptoms. Complete response means no pain and no new lesions. Infliximab is the best biologic for moderate to severe HS. Layering therapies is important for effective management. Optimizing medical management is essential before surgery. Chapters 00:00 - Introduction to the Future of Dermatology Podcast 01:03 - Managing Hidradenitis Suppurativa (HS) with Medical Therapies 04:35 - Understanding Biologics in HS Treatment 09:17 - Clinical Pearls for TNF Inhibitors in HS 11:35 - Optimizing HS Management Before Surgery

The Future of Dermatology
Episode 75 - Exploring Non-Biologic Therapies for Hidradenitis Suppurativa from SF Derm Society 2024 Annual Meeting | The Future of Dermatology Podcast

The Future of Dermatology

Play Episode Listen Later Feb 25, 2025 19:37


Summary In this episode of the Future of Dermatology Podcast, we hear from Dr. Maria Aleshin who spoke at the Annual SF Derm Society's 2024 Meeting. She presents on Hidradenitis Suppurativa (HS) and various non-biologic treatment strategies. Dr. Aleshin covers practical approaches to managing HS flare-ups, long-term management considerations, and the role of antibiotics in treatment. She emphasizes the importance of personalized care and the need for a multifaceted approach to effectively address this challenging skin condition.   Takeaways The pathogenesis of HS is multifactorial, requiring a comprehensive treatment approach. Treatment stacking often involves combining medical, procedural, and lifestyle interventions. Topical therapies like chlorhexidine and benzoyl peroxide are commonly recommended, but alternatives exist. Systemic antibiotics are frequently used for managing HS flares. Hormonal therapies, including oral contraceptives and spironolactone, can be effective for female patients with HS. Metformin may be beneficial for patients with metabolic dysfunction associated with HS. Isotretinoin is not a first-line treatment for HS due to mixed results. Botulinum toxin can help reduce sweating and inflammation in HS patients. Combination antibiotic therapy, particularly clindamycin and rifampin, shows high efficacy but has relapse risks. Urtipenem is a powerful antibiotic reserved for severe HS cases as a bridge to surgery or biologics. Chapters 00:00 - Introduction to the Future of Dermatology Podcast 01:19 - Understanding Hidradenitis Suppurativa (HS) and Its Complexities 07:10 - Treatment Strategies for Managing HS Flare-Ups 10:21 - Long-Term Management of HS: Hormonal and Metabolic Considerations 13:20 - Antibiotic Therapies for Hidradenitis Suppurativa 17:22 - Severe HS Cases: Advanced Treatment Options and Considerations

The Health Advocates
S8, Ep 7- Finding Strength and Support: Brindley Brooks on Living with Hidradenitis Suppurativa (HS)

The Health Advocates

Play Episode Listen Later Feb 20, 2025 14:29


In this episode of The Health Advocates, our hosts welcome Brindley Brooks, founder and executive director of HS Connect. Brindley shares her powerful journey living with Hidradenitis Suppurativa (HS) since age 10, including her misdiagnosis, the stigma surrounding HS, and how her life-changing decision to undergo surgery led her to become a passionate patient advocate. The conversation highlights the critical role of advocacy in supporting the HS community, including initiatives like GHLF's HS Patient Guide and the impactful work of HS Connect in raising awareness, providing education, and fostering a supportive community for those living with HS. Among the highlights in this episode: 01:23: Brindley introduces herself and shares HS Connect’s mission of providing factual education and promoting shared decision-making 01:53: Brindley recounts her early experience with HS, initial misdiagnosis, and the stigma that discouraged her from seeking care for over a decade 03:57: Brindley describes the pivotal decision to undergo surgery, the transformative impact it had on her life, and finding empowerment through that choice 06:12: Brindley discusses the founding of HS Connect, its rapid growth, and the organization’s focus on correcting misconceptions and reducing stigma in the HS community 08:18: Steven Newmark, Chief of Policy at GHLF, talks about GHLF’s HS Patient Guide and highlights Brindley’s role in incorporating patient perspectives into the resource 08:36: Brindley shares why patient-involved educational resources are essential for HS patients and her experience collaborating with GHLF 09:37: Brindley explains the different levels of advocacy, from sharing personal stories to influencing federal policies, including a campaign for insurance coverage of laser hair removal for HS patients 10:46: Steven emphasizes the importance of collaboration between organizations like GHLF and HS Connect in advancing advocacy 11:26: Brindley outlines HS Connect’s 2025 priorities, including mental health initiatives like "Healing Space for HS" and broader advocacy campaigns 12:58: Brindley offers words of encouragement, urging those with HS to seek community support and to know they are not alone To learn more about HS and access GHLF’s HS Patient Guide, visit: https://ghlf.org/hspatientguide/ Contact Our Hosts Steven Newmark, Chief of Policy at GHLF: snewmark@ghlf.org Zoe Rothblatt, Director of Community Outreach at GHLF: zrothblatt@ghlf.org A podcast episode produced by Ben Blanc, Associate Director, Digital Production and Engagement at GHLF. We want to hear what you think. Send your comments in the form of an email, video, or audio clip of yourself to podcasts@ghlf.org Catch up on all our episodes on our website or on your favorite podcast channel.See omnystudio.com/listener for privacy information.

The Future of Dermatology
Episode 74 - Insight into Hidradenitis Suppurativa from SF Derm Society 2024 Annual Meeting | The Future of Dermatology Podcast

The Future of Dermatology

Play Episode Listen Later Feb 18, 2025 12:27


Summary In this episode of the Future of Dermatology podcast, we hear from Dr. Leandra A. Barnes, who, during the SF Derm Society 2024 Annual Meeting, presented on the challenges and strategies in managing Hidradenitis Suppurativa (HS), a chronic inflammatory skin condition. She explores the barriers to care, the importance of optimizing clinic visits, building trust with patients, and effective treatment approaches. Dr. Barnes emphasizes the need for early intervention, patient empowerment, and the role of follow-up care in improving patient outcomes.   Takeaways HS is a painful and disfiguring chronic inflammatory disease. There is a significant diagnostic delay of 7 to 10 years for HS. Barriers to care include cost, stigma, and lack of knowledge. Provider attitudes and health system characteristics impact patient care. Empathy and clear communication are crucial in patient visits. Preparation before patient visits can optimize care delivery. Early intervention is key to managing HS effectively. Patients prioritize treatment and flare management during visits. Support groups can empower patients between visits. Follow-up care is essential to prevent emergency room visits.   Chapters 00:00 - Introduction to the Future of Dermatology Podcast 01:35 - Understanding Hidradenitis Suppurativa (HS) 05:02 - Optimizing the HS Clinic Visit 07:03 - Building Trust and Communication in Patient Visits 08:01 - Treatment Approaches for HS 10:52 - Follow-Up and Patient Empowerment

Success Beyond Depressed
Silent Struggles: HS and Depression

Success Beyond Depressed

Play Episode Listen Later May 20, 2024 36:37


Hey yall, join us on "Silent Struggles," a podcast dedicated to shedding light on the often overlooked connection between Hidradenitis Suppurativa (HS) and depression. HS is a chronic skin condition that can have a profound impact on both physical and mental health. Each episode features personal stories from those living with HS, insights from medical professionals, and expert advice on managing the psychological toll of this painful condition. Together, we aim to foster a supportive community and provide practical tools for navigating life with HS and depression. Tune in to break the silence and find hope and resilience in shared experiences. As always follow us on Instagram @bewell_thebrand or email us for any inquiries at thebrand.bewell@gmail.com

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The Skin Real
The chronic skin condition you've never heard of Hidradenitis Supprativa

The Skin Real

Play Episode Listen Later Mar 18, 2024 41:19


Ever wonder why you get those painful lesions in areas where your skin rubs together? It might be Hidradenitis Suppurativa (HS), also known as acne inversa! Dealing with HS can be challenging both physically and emotionally. The pain, discomfort, and embarrassment associated with the condition can take a toll on one's quality of life.   Hidradenitis Suppurativa (HS) can be a frustrating condition, and there's a lot of misinformation out there. Ready to separate fact from fiction about Hidradenitis Suppurativa? Join Dr. Sayed and me on this week's podcast episode as we uncover the truth behind common misconceptions and discuss effective treatment options! For more information on HS, check out the Hidradenitis Suppurativa Foundation and other reliable sources for valuable information and resources.   In this episode:   What is Hidradenitis Suppurativa? (5:33) Misconceptions about HS (9:35) Who is affected by HS? (18:24) Websites and Support Groups for HS (28:45) Treatment Options for HS (30:37) Top 3 pearls for someone with HS (35:35)   Dr. Sayed is director of the HS Clinic and Professor of Dermatology at the University of North Carolina at Chapel Hill.  He's on the board of the directors for the HS Foundation and an investigator for several clinical trials for HS and NIH-funded research on the genetics of HS.   For more information on HS, check out the Hidradenitis Suppurativa Foundation and other reliable sources for valuable information and resources.   Follow Dr. Mina here:-  https://instagram.com/drminaskin   For more great skin care tips, subscribe to The Skin Real Podcast or visit www.theskinreal.com  Baucom & Mina Derm Surgery, LLC  Email - scheduling@atlantadermsurgery.com Contact - (404) 844-0496  Instagram - @baucomminamd Thanks for listening! The content of this podcast is for entertainment, educational, and informational purposes and does not constitute formal medical advice.

PeDRA Pearls
Unraveling HS: Exploring Hidradenitis Suppurativa Research - Episode One

PeDRA Pearls

Play Episode Listen Later Mar 6, 2024 57:58


Hidradenitis Suppurativa (HS) expert, Haley Naik, MD of the University of California, San Fransisco joins Drs. Cotton and Lara-Corrales for a comprehensive discussion about diagnosis and treating early onset HS in the clinic and highlights the specific research taking place globally to help change outcomes for pediatric patients suffering from this devastating condition.

Heal Thy Skin by Dermhealth.co |
(Rerun) Hidradenitis Suppurativa: Coping, Support, and Living Well with Kathryn Shusta, HS Advocate

Heal Thy Skin by Dermhealth.co |

Play Episode Listen Later Feb 21, 2024 56:34


Hidradenitis Suppurativa (HS) is a chronic, inflammatory skin condition that causes recurrent and painful nodules, boils, abscesses and lesions of the skin.   Living with a chronic skin condition like HS is not just about managing physical symptoms and flare-ups. Living with a recurring, painful and sometimes visible condition can impact a person's emotions, social life and relationships. HS presents on the skin, but it can really take a toll on the whole body, emotionally and physically. There are a lot more nights in and a lot more ‘self-care.   In this podcast episode, Marni spoke with Kathryn Shusta, creator of KS and HS.    Kathryn started her HS advocacy work in 2020 by creating KS and HS, an Instagram page that raises awareness of HS and what it is like to live with a chronic illness. She was not diagnosed with HS until she was 17 years old, 7 years after her first HS flare. Unfortunately, this is a common occurrence for people with Hidradenitis Suppurativa. Kathryn began her Instagram as an outlet for her feelings about HS. Since then, she has found advocating and helping others to be rewarding and inspiring. She uses her background is in social work and public administration to inform her practice in advocacy. She promotes information based on research and evidence-based best practices through the lens of her own HS experiences. For fun, Kathryn likes to crochet while watching her favourite movies and go on adventures in her hometown. Join us in this incredible episode as Kathryn uncovers the biggest misconceptions and shares first-hand experience with Hidradenitis Suppurativa.   Learn more about Kathryn Shusta here: Website: ⁠https://ksandhs.com/⁠ Instagram: @ksandhs   Resources: ⁠https://www.hs-foundation.org/⁠ ⁠https://www.nobsabouths.com/⁠ ⁠https://hsdisease.com/⁠   Be sure to subscribe to the podcast! And follow us on Instagram @dermhealth.co or visit us online at https://www.dermhealth.co/   ----   This episode is powered by Digital Health Co  

The Skinny Dipping Rx
Shedding The Shame of Hidradenitis Suppurativa: A Conversation with Brindley Brooks

The Skinny Dipping Rx

Play Episode Listen Later Jan 6, 2024 48:28


If you've never heard of Hidradenitis Suppurativa (HS), you're not alone, but more than likely you know someone who may be silently suffering with this chronic inflammatory skin condition.HS can affect our most intimate places on our physical body causing pain, discomfort and disability. HS also can have a profound impact beneath the surface on our psychosocial wellbeing.Even if you don't have HS, no doubt at some point in your life you have experienced a felt sense of shame, a universal experience, that makes this episode one you're going to want to tune into.In this episode, we are stripping down the myths and misconceptions about HS, reveal how best to navigate living with it as well as shine a spotlight on how to shed the shame that keeps too many people hiding in plain sight when it comes to living with HS (or any other challenge for that matter.)I'm grateful that Brindley Brooks, the Founder and Executive Director of HS Connect, a patient led non profit advocacy group for those with Hidradenitis Suppurativa (HS) is my guest and sharing her story of living with this disease. She's suffered with HS for 34 years and was silent about her battle for the majority of that time, it wasn't until she had wide excision surgery for her HS that she started the conversation and now she can't stop!So grab your favorite beverage and get cozy, because if you've ever felt unseen and unheard, especially when dealing with a medical issue, you are gonna want to listen to this.Host: Dr. Keira BarrDISCLAIMERThis podcast is meant for educational and informational purposes only. Neither this podcast nor any information contained within it are a substitute for professional care by a doctor or other qualified medical professional. This podcast does not constitute medical or other professional advice or services. If you have a medical concern, please consult with your physician. Connect with Dr. KeiraIf you want to start feeling comfortable in your skin right away, take the free Skincare QuizCome hang out on Instagram with me!Grab a copy of my book, The Skin Whisperer.Connect with Brindley:HSConnect.Org Website: https://www.hsconnect.org/Social Media: Instagram, Facebook 

PeDRA Pearls
PeDRA at the Symposium on Hidradenitis Suppurativa Advances - Part One

PeDRA Pearls

Play Episode Listen Later Oct 23, 2023 33:43


PeDRA had the privilege of attending the Symposium on Hidradenitis Suppurativa Advances (SHSA) in Phoenix, AZ in October 2023. During the meeting, PeDRA's Associate Director of Educational Programs interviewed three amazing presenters to discuss the incredible work being done in this space. First up is Lynn Petukhova, PhD, discussing her ground-breaking work in Hidradenitis Suppurativa (HS) genetics and how she harnesses the power of genome-wide association studies (GWAS). Following this, you'll gain insight into more HS research through two poster interviews with MD candidates Nicholas Chiang and Sydney Dong, respectively. For more information on Dr. Petukhova's work, or to submit a case study, please visit the Columbia University Data Science Institute. SHSA is an annual meeting organized by the Hidradenitis Suppurativa Foundation (HSF) to bring experts from around the world to share their experiences with HS.

Hand Me My Purse.
No. 67: A Real Conversation About Hidradenitis Suppurativa w/Jasmine IVANNA Espy. PART TWO.

Hand Me My Purse.

Play Episode Listen Later Oct 4, 2023 50:47 Transcription Available


Hey Friends & Kin!   FYI: THIS, JUST LIKE ALL EPISODES OF HAND ME MY PURSE, CONTAINS PROFANITY. THIS PODCAST IS FOR ADULTS AND CONTAINS ADULT CONTENT. Now that we've gotten that out of the way... _________   Friends and Kin in this episode I had the pleasure of interviewing an amazing sista with a story that definitely should be shared. Jasmine IVANNA Espy, 29, influencer, filmmaker and advocate is a co-producer on the upcoming documentary, “The Beacons: Illuminating HS Stories,” a new docuseries from Novartis that highlights her story and others living with Hidradenitis Suppurativa (HS), a disfiguring skin disease with no cure that causes small, painful lumps to form under the skin. HS is estimated to affect as many as 1 in 100 people worldwide. Black women under the age of 40 have the highest risk of developing HS and may also have more severe cases than white people. Despite this disparity, they tend to go longer without a diagnosis or treatment.     In Part Two of this conversation, Jasmine shares her experience with HS & how it has affected how she navigates life. She tells us about how this condition affects her as a grown woman, her mental health and social interaction. Jasmine also shares how she has used her voice to advocate for herself and others with HS. Jasmine took a diagnose that caused a lot of trauma as a young girl and has flipped it on its head to go out into the world and make a difference. She is a superhero! This conversation is one of the reasons I started this podcast, as there are so many stories in our community that are untold. It's time to share them! Enjoy!

Hand Me My Purse.
No. 67: A Real Conversation About Hidradenitis Suppurativa w/Jasmine IVANNA Espy. PART ONE.

Hand Me My Purse.

Play Episode Listen Later Oct 3, 2023 51:37 Transcription Available


Hey Friends & Kin!   FYI: THIS, JUST LIKE ALL EPISODES OF HAND ME MY PURSE, CONTAINS PROFANITY. THIS PODCAST IS FOR ADULTS AND CONTAINS ADULT CONTENT. Now that we've gotten that out of the way... _________   Friends and Kin in this episode I had the pleasure of interviewing an amazing sista with a story that definitely should be shared. Jasmine IVANNA Espy, 29, influencer, filmmaker and advocate is a co-producer on the upcoming documentary, “The Beacons: Illuminating HS Stories,” a new docuseries from Novartis that highlights her story and others living with Hidradenitis Suppurativa (HS), a disfiguring skin disease with no cure that causes small, painful lumps to form under the skin. HS is estimated to affect as many as 1 in 100 people worldwide. Black women under the age of 40 have the highest risk of developing HS and may also have more severe cases than white people. Despite this disparity, they tend to go longer without a diagnosis or treatment.     In Part Two of this conversation, Jasmine shares her experience with HS & how it has affected how she navigates life. She tells us about how this condition affects her as a grown woman, her mental health and social interaction. Jasmine also shares how she has used her voice to advocate for herself and others with HS. Jasmine took a diagnose that caused a lot of trauma as a young girl and has flipped it on its head to go out into the world and make a difference. She is a superhero! This conversation is one of the reasons I started this podcast, as there are so many stories in our community that are untold. It's time to share them! Enjoy!

Hand Me My Purse.
No. 66: A Real Conversation About Hidradenitis Suppurativa w/Jasmine IVANNA Espy. PART ONE.

Hand Me My Purse.

Play Episode Listen Later Sep 26, 2023 54:38 Transcription Available


Hey Friends & Kin!   FYI: THIS, JUST LIKE ALL EPISODES OF HAND ME MY PURSE, CONTAINS PROFANITY. THIS PODCAST IS FOR ADULTS AND CONTAINS ADULT CONTENT. Now that we've gotten that out of the way... _________   Friends and Kin in this episode I had the pleasure of interviewing an amazing sista with a story that definitely should be shared. Jasmine IVANNA Espy, 29, influencer, filmmaker and advocate is a co-producer on the upcoming documentary, “The Beacons: Illuminating HS Stories,” a new docuseries from Novartis that highlights her story and others living with Hidradenitis Suppurativa (HS), a disfiguring skin disease with no cure that causes small, painful lumps to form under the skin. HS is estimated to affect as many as 1 in 100 people worldwide. Black women under the age of 40 have the highest risk of developing HS and may also have more severe cases than white people. Despite this disparity, they tend to go longer without a diagnosis or treatment.   In Part One of this conversation, Jasmine shares her experience with HS & how it has affected how she navigates life. She tells us about what it was like for her as when she was first diagnosed with HS and the ways it effected her as a young girl. This conversation is one of the reasons I started this podcast, as there are so many stories in our community that are untold. It's time to share them! Enjoy!

Skin The Surface
Ep. 83: Take Control of Hidradenitis Suppurativa

Skin The Surface

Play Episode Listen Later Sep 21, 2023 18:48


Dr. Rina discusses a skin inflammatory condition called Hidradenitis Suppurativa (HS), emerging therapies and its impact on mental health.

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PeDRA Pearls
Community Spotlight: HS Connect - Episode 2

PeDRA Pearls

Play Episode Listen Later Jul 6, 2023 11:35


Hidradenitis Suppurativa (HS) is a devastating inflammatory skin disease that is painful, stigmatizing, and under-researched in the pediatric population. PeDRA is shining a light on this often-overlooked disease with HS Connect, a patient advocacy organization committed to promoting research and providing resources to everyone in the HS community. HS Connect offers virtual support groups, works with the medical research community, and promotes HS education and awareness all in the name of fueling research that will lead to better outcomes for those suffering from HS.

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PeDRA Pearls
Community Spotlight: HS Connect - Episode 1

PeDRA Pearls

Play Episode Listen Later Jul 4, 2023 28:51


Hidradenitis Suppurativa (HS) is a devastating inflammatory skin disease that is painful, stigmatizing, and under-researched in the pediatric population. PeDRA is shining a light on this often-overlooked disease with HS Connect, a patient advocacy organization committed to promoting research and providing resources to everyone in the HS community. HS Connect offers virtual support groups, works with the medical research community, and promotes HS education and awareness all in the name of fueling research that will lead to better outcomes for those suffering from HS.

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360 MAG: A No-Nonsense Conversation
LAVENDER - Kaitlyn Figueroa + Justin Osborne Lowery

360 MAG: A No-Nonsense Conversation

Play Episode Listen Later Jun 12, 2023 8:50


Mental health advocate Kaitlyn Figueroa promotes a breakthrough documentary, LAVENDER, at Astoria Film Festival [AFF]. Powerful and poignant. Hidradenitis Suppurativa [HS] is a condition that causes painful bumps deep in the skin: groin, armpits, and chest. For decades, the American people have suffered from this debilitating disease. It is chronic, frequently misdiagnosed, and, in many cases, swept under the rug. Since adolescence, Kaitlyn has been fighting the disease: at a laser hair removal session, she's badly burned. She is confronted with violent partners and teased by family members.Read more.

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Clare FM - Podcasts
Clare Man Shines Light On Hidradenitis Suppurativa Condition During HS Awareness Week

Clare FM - Podcasts

Play Episode Listen Later Jun 7, 2023 13:48


On Wednesday's Morning Focus, Alan was joined by Barry McGrath from Parteen who is living with a long-term condition known as Hidradenitis Suppurativa (HS). He spoke on behalf of a recently formed patient association, HS Ireland, which is a patient- focused organisation formed to support people in Ireland affected by Hidradenitis Suppurativa. Barry discussed the physical and mental symptoms that the average person with HS experiences day to day, along with sharing his own experience with the lifelong condition. Barry highlighted how important it is to raise awareness amongst people in order to help those who are awaiting a diagnosis. If you have any question or would like to get in contact with HS Ireland you can do so by emailing info@hsireland.ie or visiting hsireland.ie.

Sunday Night Health Show
Full Show: Monkeypox, Domestic Violence & Hidradenitis Suppurativa (HS)

Sunday Night Health Show

Play Episode Listen Later Jun 6, 2022 60:14


Is Monkeypox a sexually transmitted disease? Learn the truth and the tails. Also, imagine living with painful lumps that congregate in the folds of your skin, under your armpits and groin area. Now, imagine you've seen up to 10 doctors over several years and they have no idea what you are living with. There's a good chance it's Hidradenitis Suppurativa (HS) and we talk about it on the podcast. Plus, can someone steal your womanhood? I don't think so. Guest: Dr. Jaggi Rao, dermatologist in Edmonton, Alta. See omnystudio.com/listener for privacy information.

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WONDERGIRLSAIDA
Me vs My HS: Fighting The Battle & Bringing Awareness

WONDERGIRLSAIDA

Play Episode Listen Later Jun 3, 2022 9:15


Hello everyone in this episode I will be talking about how awareness should be happen way more for Hidradenitis Suppurativa (HS) and so much more etc --- Send in a voice message: https://anchor.fm/wondergirlsaida/message

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PeDRA Pearls
Points of Discussion - Episode 1: Should Pediatric Hidradenitis Suppurativa be Treated Aggressively?

PeDRA Pearls

Play Episode Listen Later May 27, 2022 14:51


Non-Aggressive Options for Pediatric HS Dr. Irene Lara-Corrales and Dr. Yasmine Kirkorian discuss non-aggressive treatment options available to pediatric patients with Hidradenitis Suppurativa (HS) and how difficult it can be to quantify just exactly what it means when providers recommend “lifestyle” changes to help treat this devastating inflammatory skin disease.

PeDRA Pearls
Points of Discussion - Episode 2: Should Pediatric Hidradenitis Suppurativa be Treated Aggressively?

PeDRA Pearls

Play Episode Listen Later May 27, 2022 14:33


Aggressive Options for Pediatric HS Dr. Lara-Corrales and Dr. Izzy Andrews discuss aggressive treatments for Hidradenitis Suppurativa (HS) and highlight the importance of a multi-disciplinary care team to help treat the psychosocial aspects and the physical pain associated with this traumatic disease. Access to care is also a key component in combating HS and it's critical that more than just pediatric dermatologists have a better understanding of HS before treating patients.

PeDRA Pearls
Points of Discussion - Episode 3: Should Pediatric Hidradenitis Suppurativa be Treated Aggressively?

PeDRA Pearls

Play Episode Listen Later May 27, 2022 18:31


Unanswered Questions in Pediatric HS The group addresses lingering research questions and stresses the importance of disease education in order to meet the needs of Hidradenitis Suppurativa (HS) patients. Consensus guidelines exist for adult HS but have yet to be written for pediatric HS. The need for early diagnosis is not only critical for disease management but is vital for the overall well-being of patients and their families.  

Spot Diagnosis
S03E03: Hidradenitis Suppurativa

Spot Diagnosis

Play Episode Listen Later Mar 7, 2022 33:12


In this episode we explore Hidradenitis Suppurativa (HS) alongside guest expert A/Prof Erin McMeniman. HS can be easy to overlook and carries a heavy burden on its sufferers. In this episode, we discuss how HS may present, what causes it, how it can be managed as well as some emerging therapies for its treatment. See omnystudio.com/listener for privacy information.

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WONDERGIRLSAIDA
Life With HS

WONDERGIRLSAIDA

Play Episode Listen Later Jan 28, 2022 10:49


Hello everyone in this episode I will be talking about how I was diagnosed with my chronic rare disease called Hidradenitis Suppurativa (HS) it is a very very hard condition to live with and handle I was diagnosed with my HS when I was 23 years old and I learned that I had to fight hard with the disease and so much more etc I dedicate this episode to all of those who are diagnosed with HS and or have the symptoms of HS and is afraid to speak up about it --- Send in a voice message: https://anchor.fm/wondergirlsaida/message

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JCMS: Author Interviews (Listen and earn CME credit)
Ep 42 - Dr Raed Alhusayen - Ultrasound Imaging in Dermatology

JCMS: Author Interviews (Listen and earn CME credit)

Play Episode Listen Later Dec 6, 2021 27:03


Dr Raed Alhusayen joins Kirk Barber to discuss his article, "Overview of Ultrasound ImagingApplications in Dermatology," from the September/October edition of the Journal Cutaneous Medicine and Surgery. Currently, the most readily available technologies used by dermatologists include dermoscopy and photography. But ultrasound is emerging as a useful, non-invasive tool, which can help with early and more accurate diagnosis. In this fascinating conversation, Raed and Kirk talk about why complete visualization of lesions is critical for the accurate diagnosis and management of dermatological diseases, including Hidradenitis Suppurativa (HS), connective tissue diseases like morphia, and in malignancy cancer screenings and surgical excisions.Dr Raed Alhusayen is assistant professor at the University of Toronto, an associate scientist at Sunnybrook Research Institute and past president of the Canadian HS Foundation.Dr. Alhusayen's co-authors on this article are: Nouf Almuhanna, Ximena Wortsman,Iris Wohlmuth-Wieser and Misaki Kinoshita-Ise.The article is available to read outside the paywall for 3 weeks on the JCMS website at this link:https://journals.sagepub.com/doi/10.1177/1203475421999326JCMS Author Interviews is produced by David McGuffin of Explore Podcast Productions in Ottawa.Our theme music was composed by Lee Rosevere.Be sure to also check out the CDA's Residents Podcast, Dermalogues, hosted by Dr Kerri Purdy.

university toronto surgery ottawa imaging ultrasounds dermatology cda lee rosevere raed hidradenitis suppurativa hs jcms explore podcast productions
JCMS: Author Interviews (Listen and earn CME credit)
Dr Raed Alhusayen - Ultrasound Imaging in Dermatology

JCMS: Author Interviews (Listen and earn CME credit)

Play Episode Listen Later Dec 6, 2021 27:03


Dr Raed Alhusayen joins Kirk Barber to discuss his article, "Overview of Ultrasound ImagingApplications in Dermatology," from the September/October edition of the Journal Cutaneous Medicine and Surgery. Currently, the most readily available technologies used by dermatologists include dermoscopy and photography. But ultrasound is emerging as a useful, non-invasive tool, which can help with early and more accurate diagnosis. In this fascinating conversation, Raed and Kirk talk about why complete visualization of lesions is critical for the accurate diagnosis and management of dermatological diseases, including Hidradenitis Suppurativa (HS), connective tissue diseases like morphia, and in malignancy cancer screenings and surgical excisions.Dr Raed Alhusayen is assistant professor at the University of Toronto, an associate scientist at Sunnybrook Research Institute and past president of the Canadian HS Foundation.Dr. Alhusayen's co-authors on this article are: Nouf Almuhanna, Ximena Wortsman,Iris Wohlmuth-Wieser and Misaki Kinoshita-Ise.The article is available to read outside the paywall for 3 weeks on the JCMS website at this link:https://journals.sagepub.com/doi/10.1177/1203475421999326JCMS Author Interviews is produced by David McGuffin of Explore Podcast Productions in Ottawa.Our theme music was composed by Lee Rosevere.Be sure to also check out the CDA's Residents Podcast, Dermalogues, hosted by Dr Kerri Purdy.

university toronto surgery ottawa imaging ultrasounds dermatology cda lee rosevere raed hidradenitis suppurativa hs jcms explore podcast productions
WONDERGIRLSAIDA
Living with my Rare Diseases and Living Life

WONDERGIRLSAIDA

Play Episode Listen Later Nov 30, 2021 3:50


Hello my name is saida mahoney I am 25 years old and I am diagnosed with 2 chronic rare diseases I was born with my rare genetic disease Partial Trisomy 8q Duplication Syndrome for short it is called Partial Trisomy Of 8q Syndrome My genetic disease has caused me to have so many difficulties over the years I learned how to fight harder through all the struggles and I learned how to fight through all the ups and downs as well I am also diagnosed with another rare chronic disease called Hidradenitis Suppurativa (HS) for short my HS have caused me to have painful flare ups and pain as well as bleeding as well I have been to the hospital numerous of times due to my HS I also receive injection treatments for my HS as well --- Send in a voice message: https://anchor.fm/wondergirlsaida/message

living life hs rare diseases hidradenitis suppurativa hs
Learn Skin with Dr. Raja and Dr. Hadar
Episode 96: HS - A Turning Point

Learn Skin with Dr. Raja and Dr. Hadar

Play Episode Listen Later Aug 5, 2021 26:50


Wondering what's coming down the pipeline for Hidradenitis Suppurativa (HS)? It's overflowing. This week, Dr. Joslyn Kirby discusses the recent strides in the management of HS and the exciting future to come. Each Thursday, join Dr. Raja and Dr. Hadar, board certified dermatologists, as they share the latest evidence based research in integrative dermatology. To learn more about HS, enroll in the LearnSkin CME series chaired by Dr. Kirby: https://www.learnskin.com/series/hidradenitis-suppurativa-series   Joslyn Kirby, MD, MS MEd is a board certified dermatologist, associate professor at Penn State University, and Vice President of the HS Foundation. Dr. Kirby has been an investigator on several clinical trials, both industry-sponsored and investigator-initiated. She also utilized mixed methods in educational research and developed a novel workplace-based evaluation tool to support resident and student evaluation as well as worked to design and implement a clinical decision support app for prescribing topical corticosteroids (the CorticoCream Calculator, available in the iTunes and Play stores).

Learn Derm Podcast
Ep34 – MISC – Hidradenitis Suppurativa (HS) I – The Patient Experience With Dr. Katelyn Baker

Learn Derm Podcast

Play Episode Listen Later Jul 1, 2021 22:27


In the first episode of season 3, we begin our three episode series on hidradenitis suppurativa with a discussion of the HS patient experience with Dr. Katelyn Baker, a doctor of clinical psychology who graciously shares with us her own personal experiences as a patient with HS. She also offers some suggestions for healthcare providers to help them make their own HS patients feel comfortable and empowered in working together to manage and treat their disease. Dr. Katelyn Baker's Social Media Platforms: Tiktok: @thatfatdoctor Instagram: @thatfatdoctor YouTube: @ThatFatDoctor Connect with us: Facebook │ Instagram www.grenzzonederm.com – includes excellent episode study guides! Feel free to contact us with any feedback through our website or at grenzzonederm@gmail.com If you enjoy the podcast, please help us out by sharing the episodes with a friend and by leaving a 5-star review. When he's up for it, Dr. Grumpypants will read his favorite recent review on our social media accounts, will it be yours? Musical support provided by: • Daniel Thompson (bass) • Alec Tackmann (drums) • Thomas and the Shakes Terms of use: The views, information, or opinions expressed during this podcast: 1) are for general informational purposes, 2) are solely those of the individuals involved, and 3) do not represent those of Orange Park Medical Center, Olmsted Medical Center, or their affiliates. By listening to this podcast, you agree not to use this podcast as medical advice to treat any medical condition in either yourself or others, including but not limited to patients that you are treating. Consult your own physician for any medical issues that you may be having. This entire disclaimer also applies to any guests or contributors to the podcast. Under no circumstances shall Pearl Podcasting, LLC, any guests or contributors to the podcast, or any employees, independent contractors, associates, or affiliates of Pearl Podcasting, LLC be responsible for damages arising from use of the podcast.

Ageless Conversations with Tamika McTier
Your Story Has Purpose w/ Morgan Cobbs

Ageless Conversations with Tamika McTier

Play Episode Listen Later Jun 3, 2021 35:11


Morgan Cobbs is a designer, creative, and blogger from Baltimore, MD. In 2016, she faced a significant depression which resulted in her rededication back to Christ and passion for her faith, young women, lifestyle, and purpose. Through her walk, she realized a gap that kept her unsettled. In 2020, she created a faith-based blog, ‘Hers Truly Morgan Cobbs,' where she tells her story and discusses all things' purpose, inspiration, faith, wellness, and lifestyle!Morgan was officially diagnosed with an incurable autoimmune disease Hidradenitis Suppurativa (HS). After years of hiding it, covering my wounds, surgeries, and just trying to manage it, in 2020, all hell broke loose. Her HS was the worse it had even been in my life, and for months I was crippled with pain and discomfort. She couldn't walk or move her arms without help from March-November 2020. She lost a massive part of her life and suffered from her faith and depression for months. In October, she refused to get another surgery (that is the only resolution for my HS) and decided to seek other means of medical help. She decided to see a Rheumatologist that rests Rheumatoid Arthritis, Lupus, and other autoimmune diseases and found out that after some blood work, I had Rheumatoid Arthritis (RA).In this episode, you'll find out:What is an auto-immune disease and specifically what is HS?The age she was diagnosed with HS?How her faith has guided her on this journeyWhy she decided to share her storyThe advice she would give someone that is dealing with an auto-immune disease in silenceYou can connect with Morgan after this episode at:email address: morgan.cobbs@gmail.comwebsite: https://herstrulymorgancobbs.com/IG: herstrulymorgancobbs Twitter: herstrulymcobbs Clubhouse: herstrulymcobbsConnect with Tamika at the following:email address: tamikamctier@gmail.comFacebook: https://www.facebook.com/tamika.mctier/Instagram: https://www.instagram.com/_tamikamctier/  Looking for resources for marriage, finances and how to get started on your fitness journey? If you answered yes to any of these, grab your free resources now. https://tamikamctier.com/work-with/ Please rate and review the podcast. It really helps more people find me. I take time to read every message and appreciate your feedback and 5 star review. 

Heal Thy Skin by Dermhealth.co |
Hidradenitis Suppurativa: Coping, Support, and Living well with Kathryn Shusta, HS Advocate

Heal Thy Skin by Dermhealth.co |

Play Episode Listen Later May 17, 2021 54:50


Hidradenitis Suppurativa (HS) is a chronic, inflammatory skin condition that causes recurrent and painful nodules, boils, abscesses and lesions of the skin. Living with a chronic skin condition like HS is not just about managing physical symptoms and flare-ups. Living with a recurring, painful and sometimes visible condition can impact a person's emotions, social life and relationships. HS presents on the skin, but it can really take a toll on the whole body, emotionally and physically. There are a lot more nights in and a lot more ‘self-care. In this week's podcast episode, Marni will be speaking with Kathryn Shusta, creator of KS and HS. Kathryn started her HS advocacy work in 2020 by creating KS and HS, an Instagram page that raises awareness of HS and what it is like to live with a chronic illness. She was not diagnosed with HS until she was 17 years old, 7 years after her first HS flare. Unfortunately, this is a common occurrence for people with Hidradenitis Suppurativa. Kathryn began her Instagram as an outlet for her feelings about HS. Since then, she has found advocating and helping others to be rewarding and inspiring. She uses her background is in social work and public administration to inform her practice in advocacy. She promotes information based on research and evidence-based best practices through the lens of her own HS experiences. For fun, Kathryn likes to crochet while watching her favourite movies and go on adventures in her hometown. Join us in this incredible episode as Kathryn uncovers the biggest misconceptions and shares first-hand experience with Hidradenitis Suppurativa. Learn more about Kathryn Shusta here: Website: https://ksandhs.com/ Instagram: @ksandhs Resources: https://www.hs-foundation.org/ https://www.nobsabouths.com/ https://hsdisease.com/ Be sure to subscribe to the podcast! And follow us on Instagram @dermhealth.co or visit us online at https://www.dermhealth.co/ --- Send in a voice message: https://anchor.fm/dermhealthco/message

Skin The Surface
Get In The Know About Hidradenitis Suppurativa (HS)

Skin The Surface

Play Episode Listen Later Feb 26, 2021 19:16


Dr. Mary & Dr. Rina are joined by board-certified dermatologist and HS expert Dr. Sherry Yang to discuss the cause, treatment and management of HS

hs hidradenitis suppurativa hs
Borrowed Faith with Courtney Howell
#07: Iron Sharpens Iron: A conversation about Hidradenitis Suppurativa with Chaz Frazier

Borrowed Faith with Courtney Howell

Play Episode Listen Later Jan 9, 2021 40:50


"Iron Sharpens Iron." Proverbs 27:17 Y"all, Borrowed Faith just got vulnerable! On this episode, we have the honor of meeting Chaz Frazier! Chaz is a California native and has a big heart for his family, all things sports, and Jesus. But thats not all. Chaz is an HS warrior... and so am I. Hidradenitis Suppurativa (HS) is a chronic inflammatory condition where an overactive immune system contributes to inflammation below the surface of the skin. Listen along as Chaz and I share a little bit of our stories and encourage one another on this journey. As Chaz says, "Our testimony is someone else's prophecy!"

The PCOS Nutritionist Podcast
How to approach talking PCOS with someone you’re dating, an 80/20 lifestyle, changing your exercise as a sportswoman and coming off the Pill to conceive.

The PCOS Nutritionist Podcast

Play Episode Listen Later Sep 8, 2020 41:39


Struggling with skin issues? Started dating someone new and don’t know how to bring up your PCOS? Struggling with actually implementing the 80/20 lifestyle? Struggling to change your exercise as someone who competes professionally? Thinking of coming off the Pill so you can start trying?Well, luckily for you this week is a full Q&A style podcast - and I’m answering all of these questions! Yep, I’m back with the Q&A podcasts - now on a monthly basis so I can answer more of your burning questions!I know the journey of understanding your PCOS, figuring out what lifestyle changes work for you and trying to manage your symptoms is stressful to say the least. I wish I had more resources when I was initially diagnosed and trying to figure out how to deal with my symptoms so you find this podcast useful.This episode is for you if:You think you might have Hidradenitis Suppurativa (HS)You want some advice on how to treat HSYou’re planning to get pregnant and you’re still on hormonal birth controlWhy timing ovulation is so important How long it can sometimes take for your cycle to regulate coming off the PillSome things we cover in this episode:What is Hidradenitis Suppurativa (HS)?What to expect when you’re coming off the Pill when you want to get pregnantResearch on HS and treatment options for it (natural and medicinal)How to approach the conversation around PCOS and fertility when dating someone newChanging your exercise when you’re a competitive level sportswomanHow I actually implement the 80/20 lifestyle when it comes to addressing my PCOSLinks to our programs:The PCOS ProtocolEggducated

The Healthy Skin Show
152: Hidradenitis Suppurativa: An Integrative Approach w/ Dr. Hadar Lev-Tov

The Healthy Skin Show

Play Episode Listen Later Jul 23, 2020 40:57


Hidradenitis Suppurativa (HS) is a condition that affects many people, but isn't well-known. I struggled with it for a while, initially mistaking it for some sort of cancer because of the painful lump in my armpit! My guest today, Hadar Lev-Tov, MD, MAS, is an Assistant Professor, and the Director of the Wound Healing Fellowship Program at the University of Miami, Dr. Phillip Frost Department of Dermatology and Cutaneous Surgery, the Miller School of Medicine. Dr. Lev-Tov completed his residency at Albert Einstein College of Medicine and obtained a Master degree in clinical research from the University of California, Davis. His research interests include the treatment and prevention of chronic wounds, such as venous leg ulcers and diabetic foot ulcers as well as hidradenitis suppurativa. Dr. Lev-Tov's work is supported in part by the Dermatology Foundation, NIH and industry. He is also the co-host of the popular Learnskin Podcast. He specifically enjoys bringing an integrative approach to each of his patients Join us as we talk about Hidradenitis Suppurativa (HS), a painful skin condition that can be very difficult to treat, especially because it is not well-known in the medical community. Do you successfully manage your HS? Let me know in the comments! In this episode: What is Hidradenitis Suppurative (HS)? What causes HS? Why does HS feel worse during exercise/sweating? When to address it How doe hormones affect HS? Can nutrition help with Hidradenitis Suppurativa? Quotes “So maybe there's a genetic background. We know that it runs in certain families and it's been associated with some syndromes that we can actually pinpoint to a gene, but it's not everybody. So, we can't say everybody has a genetic part. And the other part that may play a role are hormones.” [5:06]  “It's a disease that's easy to hide. So, the patients really suffer quietly. They hide it, they don't want to talk about it. It's very cruel disease, very cruel. And the suffering is just unbelievable.” [9:50] Links Find Dr. Lev-Tov online Hidradenitis Suppurativa Foundation Healthy Skin Show ep. 103: Hidradenitis Suppurativa: The Tip That Stopped My Flares Jennifer's appearance on the LearnSkin Podcast: An Inside-Out Approach: The Role of Nutritionists and Nutrition in Healthy Skin Diabetes.Org Follow Dr. Lev-Tov on Instagram

Supporting Women in Social Enterprise
8: Episode 7 - Looking after your health & wellbeing in challenging times

Supporting Women in Social Enterprise

Play Episode Listen Later Apr 30, 2020 73:06


We know it’s a challenging time at the moment, so we’re delving deep with a bumper episode with 10 awesome women changemakers putting health and wellbeing on the map! With our 7th episode our very first virtually recorded podcast, we haven’t let the COVID-19 lockdown stop us getting our podcast out there, so tune in to this jam-packed episode!   As social entrepreneurs, juggling multiple plates is a given! And as much as you'd like, your self-care probably isn’t at the top of your priorities list. So we’ve decided to dedicate this month to the value of self-care, health and wellbeing. We’ll share insights from women changemakers who have set up health and wellbeing ventures to support the community from innovative modest wear for those with dementia to a support network for new mums.    First of all, we hear from a diverse range of inspiring women working and living in Salford providing valuable insights on why health and wellbeing is paramount for their social enterprises and the challenges that emerge. With Jasmin Bakhre @WomenWithWings3 (https://twitter.com/@WomenWithWings3) on why a tailored approach is vital when working with diverse communities, to the inspiring Michaela Parnell @MAParnellHS (https://twitter.com/maparnellhs) on why she set up HS Action Together @HsAction (https://twitter.com/HsAction) to provide valuable advice and support to sufferers of Hidradenitis Suppurativa (HS) where none was available, from creating a community for sufferers to share their views to raising the profile of HS on a national and international scale. We also hear from the award winning Kimberley Bond from Visit from the Stork @VFTSeditor (https://twitter.com/VFTSeditor) , on why she set up her social enterprise to support new mums and how B.O.O.B.S (https://www.breastfeedinginsalford.org.uk/) (Be Open On Breastfeeding in Salford) was born!   We’ve got the amazing Natasha Anand Boojihawan from @YourEarthClinic (https://twitter.com/YourEarthClinic) , with her inspiring story from burnout to rejuvenating health and the birth of Your Earth Clinic.  And how creating a holistic social enterprise has allowed her to achieve a work-life balance whilst fulfilling her life purpose.   You’ll get some health and wellbeing tips from female changemakers who are providing grassroots support to communities in the fields of brain injury, dementia, mental health and more! And finally we’ll end with some top health and wellbeing tips from how channelling your inner creativity can be a great medium to better health to the benefits of singing and mindfulness! So tune in to this bumper episode, definitely not one to be missed!   Special Thanks to Salford CVS @SalfordCVS (https://twitter.com/SalfordCVS) for supporting this month’s podcast and the work we do!    Huge thanks to our mega list of contributors for this podcast!    Natasha Anand Boojihawan @YourEarthClinic (https://twitter.com/YourEarthClinic) , Heather Henry @HeatherHenry4 (https://twitter.com/HeatherHenry4) from  @BreathChamps (https://twitter.com/BreathChamps) , Kimberley Bond  from Visit from the Stork @VFTSeditor (https://twitter.com/VFTSeditor) ,  Michaela Parnell @MAParnellHS (https://twitter.com/maparnellhs) from HS Action Together @HsAction (https://twitter.com/HsAction) , Jasmin Bakhre from Women with Wings @WomenWithWings3 (https://twitter.com/@WomenWithWings3) , Barbara Lewis from Limon Attire @LimonAttire (https://twitter.com/LimonAttire) , Rachel from Plastic Shed @Plastic_Shed (https://twitter.com/Plastic_Shed) , Emma Lenihan from Calm Connections @calmcic (https://twitter.com/calmcic) and Karen Howarth from Brain Health Breakthrough @brainhealthCIC (https://twitter.com/@brainhealthCIC) ,    For more info on our upcoming events, visit our eventbrite page (https://www.eventbrite.co.uk/o/flourish-cic-12424608687) .    For more info on Calm Connections and their family mindfulness support visit http://www.calmconnections.org/   For advice and support for new mums and breastfeeding mums in Salford from Visit from the Stork http://www.visitfromthestork.co.uk (http://www.visitfromthestork.co.uk/)   For creative ideas on how to upcycle your plastic – a great lockdown activity, visit https://www.plasticshed.org/save-plastic-from-the-bin     Supporting Women in Social Enterprise is a MIC Media Production @MICmediaUK (https://twitter.com/MICmediaUK) and is produced and edited by Vic Elizabeth Turnbull @SilentVic (https://twitter.com/SilentVic)

Do A Day with Bryan Falchuk
093. Through The Easy & Tough, We Bloom with Jackson Gillies

Do A Day with Bryan Falchuk

Play Episode Listen Later Mar 17, 2020 63:17


Jackson Gillies is a musician who has been living with Type 1 diabetes since he was three years old. He has long been an advocate for T1D, as well as for Hidradenitis Suppurativa (HS) — a skin condition he was diagnosed with as a teen. Jackson’s drive to bring his music and HS awareness to a wider audience led him to audition for the 17th season of “American Idol.” He recently talked to BT1 about his experience and the exposure he hopes to bring to the communities surrounding both conditions.   Key Points from the Episode with Jackson Gillies: Jackson is a musician and student at a music school in London. His backstory is one of facing chronic auto-immune illness since a very young age, starting with Diabetes, and progressing to more over his life. He also delivered a TEDx Talk at age 17 about his journey with HS (Hidradenitis Suppurativa). Growing up, he did a lot of musical theater, and ended up taking up guitar while being stuck in bed during his early journey with HS. He learned from the internet, decided to enter a contest, which he won, and ended up a contestant on American Idol. Early on, he was on a path to try to get famous and get his name in lights, whereas post-American Idol, he realized he should pull back and really work on his message and focus before he should be trying to get his name in lights. Music and his lyrics are so personal to him, where what he writes about are all about him and his emotions, which he thinks helps his music resonate with others because of the personal connection that comes from what he’s giving of himself in the message. Going back to childhood, early on, Jackson was prone to ear infections and would get sick a lot. At age 3, his mother noticed some strange changes in Jackson’s health. Doctors blew it off, but his mother knew something was wrong, and forced them to test his urine. Sure enough, she was right, and they realized he had Type I Diabetes. When Jackson got his first shot, he just smiled and said, “Thank you.” Type I Diabetes is when the pancreas is attacked by the body itself, and does not make insulin as a result. This is different from Type II Diabetes, which is brought on as a response to lifestyle where the body becomes desensitized to insulin, so it stops working as it should. From age 3 to 4, Jackson got insulin shots, at which point he got a pump implanted. When he was just starting puberty in his early teens, he had a growth at the edge of his hairline on his forehead that no one knew what it was. He had a plastic surgeon remove it eventually, and his family moved to Florida shortly after. Within a few months, he ended up with several other of these growth, abscesses, growing on his legs. They got so bad that he couldn’t walk, but he tried to hide from people as he was embarrassed by it. After finally saying something to his mother, they struggled to get a diagnose, finally getting one from a Naturopathic Doctor. HS is a condition where the body struggles to process toxins internally, and tries to expel them through the skin in abscesses. To be HS, there needs to be more than one abscesses, and people can get abscesses for various reasons, so it takes 7 years on average for people to get a diagnosis. The Naturopath recommended cutting out many different foods that were basically all the typical things a teenager would eat - wheat/gluten, potatoes, etc. Not only was he dealing with the pain of the condition, but also dealing with the restrictions of the diet. He would eat well at home, but not at school, so the progress of the condition continued. Jackson’s future step-father, Jeff, was trying to help by working on different recipes that he could eat and would enjoy, but they still had limitations in Florida around access to things Jackson could eat, and the humidity made the condition worse and harder to live with. With some family in California, they decided to move out there to get easier access to healthier food options and a better climate for Jackson. Music had always been an outlet for Jackson, whether listening to it, performing it in theater or starting to play it himself. Jackson’s condition got better as the climate and his diet improved. To show how diet definitely impacts the condition, he slipped up and had a breakfast burrito at school, full of wheat and potatoes, and almost immediately got a new abcess. A little girl asked him what happened to his neck, and he thought of a brilliant, simple way to describe what’s going on inside someone with HS. If you have an allergy, something comes into your body that disagrees with it, and you sneeze as a way to try to get it out. It’s like that’s going on with some things he’s eating, and his body tries to get it out like a sneeze, but through his skin, and it gets stuck, creating the things on his neck she was asking about. Jackson shared a confluence of auto-immune issues in a parent and their kids having things like Diabetes or HS. His mother has autoimmune issues with her thyroid, and he has also had autoimmune and immune-response issues throughout his life. As a result, medical treatment can be tricky as the system is designed for some average person and assumes everyone is and responds the same, but that’s not the case, and creates complications. A dermatologist who is an HS expert back East saw Jackson’s TEDx Talk, and connected with him to try to help. She realized some of what he was taking (prescribed by other doctors), had things in them that aggravated his condition, like yeast. Once his treatment plan was cleaned up similar to what he had done with his diet, things got better. It also lead him to want to pull back from heavily depending on doctors for guidance, and focused on his food and what his body seemed to need. Starting then, around 2 years ago, things have been improving. Many of his abscesses have cleared up, leaving only scars behind. He’s been able to re-introduce some foods, and knows the cues from his body to understand if he’s overdoing it in any area, and how to adjust back. You have to listen to your gut, figuratively and literally. It’s connected to your brain, and it knows. I asked about Jackson’s work to raise awareness of HS, which went back to his early experience with Diabetes. He had been in campaigns from JDRF, the Juvenile Diabetes Research Foundation, including doing photoshoots with Mary Tyler Moore. Once he had his diagnosis of HS, he found that there was nothing like that for building awareness. That’s what sparked his desire to spread the word, including doing the TEDx Talk, and how he’s been sharing his story publicly since his diagnosis. He’s hoping to save people time and suffering. With an average diagnosis time of 7 years, he knows how difficult that can be to live through, especially without having answers. There have been some really dark, long, defining moments that have impacted Jackson’s journey so much. But there are also small moments, like getting home late at night, realizing there’s no food in the house and he can’t just get takeout because of what it will do to him, so it can take hours before he has food put together he can eat. But in either the big or small tough moments, he will bloom either way. I asked if he was thankful for his experience with HS. Surprisingly to some, he is. It has lead him down a path to be able to express himself musically, have the maturity he has, or have clarity on what matters to him. In that way, yes, he is thankful and wouldn’t change things. Jackson quoted a song by the Avett Brothers, who are the reason he plays music himself. “Tell the truth to yourself.” To Jackson, this means, be honest with yourself and be aware. Don’t settle on anything too quickly just because it feels easy or good. The world is chaos, how could we make sense of anything. Our minds are too small to make sense of any of what’s going on here on Earth, so just focus on what’s in front of you right now. Links: Website: JacksonSings.com TEDx Talk: "Bringing HS (Hidradenitis Suppurativa) Out Of The Dark" TEDxSantaBarbara Jackson's Music on Spotify See Jackson's audition on American Idol Facebook: @JacksonGillies Instagram: @Jackson.Gillies Twitter: @Jackson_Gillies YouTube Subscribe to The Do a Day Podcast    Keep Growing with Do a Day Get Bryan's best-selling first book, Do a Day, which is the inspiration for this show and can help you overcome your greatest challenges and achieve in life. Read Bryan's best-selling second book, The 50 75 100 Solution: Build Better Relationships, to tap into the power we all have to improve our relationships – even the tough ones we feel have no hope of getting better. Get started on your journey to Better with the Big Goal Exercise Work with Bryan as your coach, or hire him to speak at your next event

Dermcast.tv Dermatology Podcasts
Treating the Hidradenitis Suppurativa Patient

Dermcast.tv Dermatology Podcasts

Play Episode Listen Later Jan 6, 2020


Dr. Joslyn Kirby and Dr. Ginette Okoye stop by the Dermcast TV studio for an informative discussion about the challenges of treating the Hidradenitis Suppurativa (HS) patient. “One of the things that I think a lot of our patients say is ‘my infection’ and that is a really important thing [...]

JCMS: Author Interviews (Listen and earn CME credit)
Ep 15 - Combination Therapies for Hidradenitis Suppurativa

JCMS: Author Interviews (Listen and earn CME credit)

Play Episode Listen Later Jun 7, 2019 32:06


Dr Mark Kirchhof speaks with JCMS Editor-in-chief Dr. Kirk Barber about his innovative proposal for the treatment of Hidradenitis Suppurativa (HS). Clinicians typically follow a linear approach to the treatment of HS in which one modality is attempted before moving on to the next. Dr Kirchhoff's paper challenges this sequential approach to treating Hidradenitis Suppurativa and instead proposes a model that allows for HS to be measured in a more dynamic fashion and he offers a treatment algorithm that is centred on the patient's experience of the disease.

JCMS: Author Interviews (Listen and earn CME credit)
Combination Therapies for Hidradenitis Suppurativa

JCMS: Author Interviews (Listen and earn CME credit)

Play Episode Listen Later Jun 7, 2019 32:06


Dr Mark Kirchhof speaks with JCMS Editor-in-chief Dr. Kirk Barber about his innovative proposal for the treatment of Hidradenitis Suppurativa (HS). Clinicians typically follow a linear approach to the treatment of HS in which one modality is attempted ...

JCMS: Author Interviews (Listen and earn CME credit)
Combination Therapies for Hidradenitis Suppurativa

JCMS: Author Interviews (Listen and earn CME credit)

Play Episode Listen Later Jun 7, 2019 32:06


Dr Mark Kirchhof speaks with JCMS Editor-in-chief Dr. Kirk Barber about his innovative proposal for the treatment of Hidradenitis Suppurativa (HS). Clinicians typically follow a linear approach to the treatment of HS in which one modality is attempted before moving on to the next. Dr Kirchhoff's paper challenges this sequential approach to treating Hidradenitis Suppurativa and instead proposes a model that allows for HS to be measured in a more dynamic fashion and he offers a treatment algorithm that is centred on the patient's experience of the disease.

Fitlistic Wellness Podcast
Episode 9: Living with autoimmune disease & using food for healing (ft. the Boil Queen)

Fitlistic Wellness Podcast

Play Episode Listen Later Feb 1, 2019 58:18


Many of us live with silent illnesses and feel helpless when we're told the only solution is medicating and living with it the rest of our lives. On this episode, I chat with the Boil Queen about how her diagnosis of Hidradenitis Suppurativa (HS) influenced her holistic approach to healing and wellness. Tune in to find out what to eat and what to avoid in autoimmunity as well as how our food industry may be an obstacle to healing. Follow along her journey on instagram @theboildqueen Connect with me, your host! instagram @fitlisticjenna www.fitlisticjenna.com

Open Sky Fitness Podcast
Cristina Curp: Heal Your Autoimmune Disease with the Paleo Diet- Ep 144

Open Sky Fitness Podcast

Play Episode Listen Later Apr 18, 2017 72:41


Please leave us a review at http://openskyfitness.com/review   The Power of Paleo to Heal Your Body   "You can start small. Just eliminate one thing at a time or try baby steps. Two steps forward is better than nothing when you're changing your health." - Cristina Curp of Castaway Kitchen   On this week's episode, Rob had a wonderful interview with Cristina Curp of Castaway Kitchen. They discussed how Cristina discovered she had an autoimmune disease and how not only she, but her entire family has turned towards eating healthy foods including Paleo based recipes. On this episode, you'll also learn: Cristina's story and background in nutrition. How Paleo and a low-carb diet has helped Cristina. What is the Whole 30 diet. How Cristina cooks for both herself and her husband and son. Cristina's favorite Paleo recipes to cook for her family. Cristina's book: Low Carb Paleo: Thirty Five Recipes To Help You Thrive Recipe books Cristina has collaborated with fellow bloggers:  30 Minute Clean Eats on a Budget  The Autoimmune Protocol Instant Pot Cookbook   Healing Cristina's Hidradenitis Suppurativa with Paleo For years, Cristina had Hidradenitis Suppurativa [HS] which is a chronic autoimmune disease which is incurable, extremely painful, skin disease. After years of seeking help from dermatologists, she decided that this was just the way her body was and she would always be like this. Then, Cristina began to take out certain foods from her diet and noticed an extreme change. By leaving out night shades and gluten to follow a Whole 30 and Paleo based diet, she was able to heal her skin and leaky gut.   Autoimmune Disease and Nightshade Foods What are nightshade foods? They belong to a particular food group family and include: Tomatoes Tomatillos Eggplant White Potatoes (not Sweet Potatoes) Goji Berries Tobacco Peppers (bell peppers, chili peppers, paprika, tamales, tomatillos, pimentos, cayenne, etc)   Fast Twitch vs Slow Twitch Muscles Rob and Devon also took some time at the beginning of the show to answer a question from the closed Open Sky Fitness Podcast group  on Facebook about fast twitch muscles vs slow twitch muscles. On the show, you'll learn about the difference between each muscle group and how to strengthen both of them.   Join The Open Sky Fitness Podcast Group! That's right! We have a closed Open Sky Fitness Podcast group  on Facebook where you and everyone have the opportunity to talk about your health and fitness goals in a safe environment. We post workouts and start discussions about how to be strategic around finding a healthier you. Check it out! Start Building Your Own Workouts and Meal Plan! Download Results Tracker here! Click To Download Home Workout Templates or text the word, "lifting," to 33444 to download the templates.  Download the OSF Food Journal Now! Have a Question or Review for Rob or Devon? We love answering questions and getting feedback from you, our listener! If you have any questions to ask us, want to share a review of the show, or tell us any suggestions for guests/topics that you think would be great to have on the show, just email Rob at rob@openskyfitness.com or Devon at devon@openskyfitness.com or you can also leave us a review at www.openskyfitness.com/review, ask a question in the closed Open Sky Fitness Facebook Group and even text OSFreview to 33444 to get the link.   What You'll Hear on This Episode 00:00 Open Sky Fitness Introduction 1:15  Opening comments with Rob and Devon 2:30  Fast twitch vs slow twitch: Does it influence the way we train and our performance? 8:00  How to know if you have more fast twitch or slow twitch muscles. 13:00  How to train your muscles for max results 14:40  Rob and Devon's workout tips to strengthen muscles, build your muscle mass with hypertrophy, or improve your endurance. 21:15  Introduction to Cristina Curp of Castaway Kitchen 24:00  Cristina's story and why she began to follow Whole 30 and Paleo diets 27:10  Cristina explains what the Whole 30 program is all about and how it's helped her improve her autoimmune disease and overall health. 29:30  Cristina discovering her main triggers for her autoimmune disease: nightshade foods 32:00  How Cristina handles avoiding nightshade foods around her family 33:00  How bread can affect autoimmune diseases 34:40  How parents can transition into being healthy around their families 37:00  Cristina and her family's favorite Paleo recipes 38:40  What's in Bob's Red Mill ingredients that make it so safe for Paleo baking. 43:00  How Cristina transitioned from eating her favorite foods as a child to cooking Paleo friendly recipes. What happens when her entire family gets together to eat? 44:30  How Cristina's entire family transitioned to eating healthier foods. 47:00  How Cristina's husband has changed because of Paleo recipes. 51:00  The affect some foods can have on Cristina's mind and body. Why she follows a low-carb diet. 59:15  Cristina's favorite meal to cook: crispy ground beef with garlic, lemon peel, turmeric root, and lots of herbs 1:02:45  Cristina's favorite Paleo ingredients or meals to cook for her family 1:05:10  About Cristina's books: 30 Minute Clean Eats on a Budget, The Autoimmune Protocol Instant Pot Cookbook, 35 Paleo Low-Carb Recipes 1:10:00  Closing comments with Rob and Devon 1:11:55  Open Sky Fitness Closing   RESOURCES MENTIONED DURING THE SHOW: Leave us an iTunes review Join the The Open Sky Fitness Podcast Group on Facebook Check out the official Castaway Kitchen website Learn more about Cristina and her Healing Journey Get cooking with the Castaway Kitchen Recipe Blog Check out Cristina's community books with fellow bloggers: 30 Minute Clean Eats on a Budget The Autoimmune Protocol Instant Pot Cookbook Read Cristina's own book: Low Carb Paleo: Thirty Five Recipes To Help You Thrive Connect with Cristina Curp and Castaway Kitchen via: Facebook Instagram Twitter YouTube Check out the Whole 30 Diet Read our blog article - Paleo vs Keto Diet: What's the Difference? Read Robb Wolf's latest book, Wired to Eat Learn more about our upcoming guest, Mark Sisson Find out more about Primal Kitchen from Mark Sisson Check out Abel James aka the Fat Burning Man Read about Tom Brady's diet Buy Paleo friendly products from Bob's Red Mill Check out Cook's Illustrated Listen to OSF Ep 138 - Family Trends: Generational Nutrition Check out OSF Ep 97 with Dr. Loren Cordain: The Origin of the Paleo Diet Find out Which Popular Diet is Best for You with OSF Ep 116 To Download Rob’s FREE workout templates click below** Download Templates Ask Rob a Question or tell him what is working for you: Email Rob@OpenSkyFitness.com To leave a Review for Rob and the Open Sky Fitness Podcast CLICK NOW!  Ratings and reviews are extremely helpful and greatly appreciated! They do matter in the rankings of the show and I read each and every one of them. Contact our amazing sound engineer Ryan? Send him an e-mail here: info@stellarsoundsstudio.com Thanks for Listening! Thanks so much for joining us again this week. Have some feedback you’d like to share? Leave a note in the comment section below! If you enjoyed this episode, please share it using the social media buttons you see at the bottom of the post. Do you have any questions (and would like to hear yourself on the Open Sky Fitness Podcast)? Click on the link on the right side of any page on our website that says “Send Voicemail.” And finally, don’t forget to subscribe to the show on iTunes to get automatic updates. It’s free! Thanks for listening/reading Episode 139: 16 Fitness Hacks to Kickstart Your Health! We hope you have gained more knowledge on how to be a healthier you!

Sott Radio Network
Behind the Headlines: Hidradenitis Suppurativa: Interview with Dr. Philippe Guillem

Sott Radio Network

Play Episode Listen Later Feb 2, 2014 101:00


This week we're talking with Dr. Philippe Guillem, top expert on Hidradenitis Suppurativa (Verneuil's Disease), a 'rare' condition that may in fact be very prevalent. Dr. Guillem has spent almost twenty years as a surgeon, and last year received special recognition, together with French non-profit organization 'Solidarité Verneuil', for the high-quality care he provides his patients. Typically developing in stages, Hidradenitis Suppurativa (HS) is a chronic skin condition affecting the...

Sott Radio Network
Behind the Headlines: Hidradenitis Suppurativa: Interview with Dr. Philippe Guillem

Sott Radio Network

Play Episode Listen Later Feb 2, 2014 101:00


This week we're talking with Dr. Philippe Guillem, top expert on Hidradenitis Suppurativa (Verneuil's Disease), a 'rare' condition that may in fact be very prevalent. Dr. Guillem has spent almost twenty years as a surgeon, and last year received special recognition, together with French non-profit organization 'Solidarité Verneuil', for the high-quality care he provides his patients. Typically developing in stages, Hidradenitis Suppurativa (HS) is a chronic skin condition affecting the...

french guillem hidradenitis suppurativa hidradenitis suppurativa hs
Sott Radio Network
Behind the Headlines: Hidradenitis Suppurativa: Interview with Dr. Philippe Guillem

Sott Radio Network

Play Episode Listen Later Feb 2, 2014 101:00


This week we're talking with Dr. Philippe Guillem, top expert on Hidradenitis Suppurativa (Verneuil's Disease), a 'rare' condition that may in fact be very prevalent. Dr. Guillem has spent almost twenty years as a surgeon, and last year received special recognition, together with French non-profit organization 'Solidarité Verneuil', for the high-quality care he provides his patients. Typically developing in stages, Hidradenitis Suppurativa (HS) is a chronic skin condition affecting the...

french guillem hidradenitis suppurativa hidradenitis suppurativa hs