Podcasts about Hidradenitis suppurativa

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Hidradenitis suppurativa

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Best podcasts about Hidradenitis suppurativa

Latest podcast episodes about Hidradenitis suppurativa

The Healthy Skin Show
385: Hidradenitis Suppurativa Diet: Can It Really Stop The Painful Skin Boils?

The Healthy Skin Show

Play Episode Listen Later May 15, 2025 31:16


Calling all Hidradenitis Suppurativa (HS) warriors – if you've wondered whether diet changes could help. The short answer? It might. While diet alone won't be a cure-all, many people have seen fewer flares and less pain by making specific changes.In this episode, I'm breaking down what we do know about the Hidradenitis Suppurativa diet connection, what's still unclear, and how you can start experimenting with a diet for HS without getting overwhelmed.⭐️Mentioned in This Episode:- Master + optimize your liver detox

The Dermalorian Podcast
Uncovering HS: Patient-Centered Approaches to Hidradenitis Suppurativa Care

The Dermalorian Podcast

Play Episode Listen Later Apr 25, 2025 18:08


Despite the substantial impact hidradenitis suppurativa can have on patients, many don't have a diagnosis or seek treatment. With better understanding of the disease and new and emerging treatment options, now is a great time to focus on identifying the disease and providing care, says Wendy Cantrell, DNP, CRNP. Also in this episode, Jenny Murase, MD, FAAD offers tips for getting to the root of itch, and Joe Gorelick, MSN, FNP-C addresses rosacea awareness.Like what you're hearing? Want to learn more about the Dermatology Education Foundation? Explore assets and resources on our website.

Almighty Ohm
Healing from Within: A Personal Protocol for Inflammation and Recovery

Almighty Ohm

Play Episode Listen Later Apr 20, 2025 48:00


This case study outlines a self-guided protocol that led to the remission of Hidradenitis Suppurativa and broader signs of systemic inflammation. Through mast cell stabilization using a rhythm of H1 and H2 antihistamines, mitochondrial support via low-dose methylene blue, and targeted electrolyte and lifestyle adjustments, the author experienced rapid reductions in swelling, improved energy, skin repair, and full tolerance of previously triggering foods. With no major weight loss or increased physical activity, the transformation highlights how inflammation—not fat alone—may be responsible for water retention, tissue dysfunction, and chronic illness. This protocol offers a systems-based model for addressing inflammatory disease through layered, holistic intervention.

PeerVoice Endocrinology & Metabolic Disorders Video
Francesco Lapi, PharmD, PhD - Chronic, Painful, and Often Overlooked: Working Together to Optimise Outcomes in Hidradenitis Suppurativa

PeerVoice Endocrinology & Metabolic Disorders Video

Play Episode Listen Later Apr 8, 2025 28:11


Francesco Lapi, PharmD, PhD - Chronic, Painful, and Often Overlooked: Working Together to Optimise Outcomes in Hidradenitis Suppurativa

PeerVoice Endocrinology & Metabolic Disorders Audio
Francesco Lapi, PharmD, PhD - Chronic, Painful, and Often Overlooked: Working Together to Optimise Outcomes in Hidradenitis Suppurativa

PeerVoice Endocrinology & Metabolic Disorders Audio

Play Episode Listen Later Apr 8, 2025 28:11


Francesco Lapi, PharmD, PhD - Chronic, Painful, and Often Overlooked: Working Together to Optimise Outcomes in Hidradenitis Suppurativa

EMJ podcast
Dementia care,  supporting ACPs, and handling  hidradenitis suppurativa: March 2025 Primary Survey

EMJ podcast

Play Episode Listen Later Mar 3, 2025 31:02


Advance clinical practitioners (ACPs) can have a big role to play in the emergency department, but their career paths are not always well understood. This episode features three papers from the journal which begin to address that - a census survey of over 1000 ACPs, a qualitative study on their experiences in emergency care, and a commentary on how to improve ACP training. There is also a paper from Canada discussing considerations to be made for patients living with dementia, as well as their care partners who may be accompanying them to the hospital. A bit of a curveball to close out, with a review on hidradenitis suppurativa, a challenging skin condition which can take years for a diagnosis.   Read the highlights: March 2025 Primary Survey   Care for older adults living with dementia in the emergency department: a systematic review and meta-synthesis of care partner roles and perspectives Emergency medicine advanced clinical practitioners: an English workforce census A qualitative study exploring the experiences of advanced clinical practitioner training in emergency care in the South West of England, United Kingdom How can we improve on advanced clinical practitioner training? Diagnosis and management of hidradenitis suppurativa: a review for the emergency clinician   The EMJ podcast is hosted by: Dr. Richard Body, EMJ Deputy Editor, University of Manchester, UK (@richardbody) Dr. Sarah Edwards, EMJ Semior Associate Editor and Social Media Editor, Royal Derby Hospital, UK (@drsarahedwards) You can subscribe to the EMJ podcast on all podcast platforms to get the latest podcast every month. If you enjoy our podcast, please consider leaving us a review or a comment on the EMJ Podcast iTunes (https://apple.co/4bfcMU0) or Spotify (https://spoti.fi/3ufutSL) page.

The Future of Dermatology
Episode 75 - Exploring Non-Biologic Therapies for Hidradenitis Suppurativa from SF Derm Society 2024 Annual Meeting | The Future of Dermatology Podcast

The Future of Dermatology

Play Episode Listen Later Feb 25, 2025 19:37


Summary In this episode of the Future of Dermatology Podcast, we hear from Dr. Maria Aleshin who spoke at the Annual SF Derm Society's 2024 Meeting. She presents on Hidradenitis Suppurativa (HS) and various non-biologic treatment strategies. Dr. Aleshin covers practical approaches to managing HS flare-ups, long-term management considerations, and the role of antibiotics in treatment. She emphasizes the importance of personalized care and the need for a multifaceted approach to effectively address this challenging skin condition.   Takeaways The pathogenesis of HS is multifactorial, requiring a comprehensive treatment approach. Treatment stacking often involves combining medical, procedural, and lifestyle interventions. Topical therapies like chlorhexidine and benzoyl peroxide are commonly recommended, but alternatives exist. Systemic antibiotics are frequently used for managing HS flares. Hormonal therapies, including oral contraceptives and spironolactone, can be effective for female patients with HS. Metformin may be beneficial for patients with metabolic dysfunction associated with HS. Isotretinoin is not a first-line treatment for HS due to mixed results. Botulinum toxin can help reduce sweating and inflammation in HS patients. Combination antibiotic therapy, particularly clindamycin and rifampin, shows high efficacy but has relapse risks. Urtipenem is a powerful antibiotic reserved for severe HS cases as a bridge to surgery or biologics. Chapters 00:00 - Introduction to the Future of Dermatology Podcast 01:19 - Understanding Hidradenitis Suppurativa (HS) and Its Complexities 07:10 - Treatment Strategies for Managing HS Flare-Ups 10:21 - Long-Term Management of HS: Hormonal and Metabolic Considerations 13:20 - Antibiotic Therapies for Hidradenitis Suppurativa 17:22 - Severe HS Cases: Advanced Treatment Options and Considerations

The Future of Dermatology
Episode 74 - Insight into Hidradenitis Suppurativa from SF Derm Society 2024 Annual Meeting | The Future of Dermatology Podcast

The Future of Dermatology

Play Episode Listen Later Feb 18, 2025 12:27


Summary In this episode of the Future of Dermatology podcast, we hear from Dr. Leandra A. Barnes, who, during the SF Derm Society 2024 Annual Meeting, presented on the challenges and strategies in managing Hidradenitis Suppurativa (HS), a chronic inflammatory skin condition. She explores the barriers to care, the importance of optimizing clinic visits, building trust with patients, and effective treatment approaches. Dr. Barnes emphasizes the need for early intervention, patient empowerment, and the role of follow-up care in improving patient outcomes.   Takeaways HS is a painful and disfiguring chronic inflammatory disease. There is a significant diagnostic delay of 7 to 10 years for HS. Barriers to care include cost, stigma, and lack of knowledge. Provider attitudes and health system characteristics impact patient care. Empathy and clear communication are crucial in patient visits. Preparation before patient visits can optimize care delivery. Early intervention is key to managing HS effectively. Patients prioritize treatment and flare management during visits. Support groups can empower patients between visits. Follow-up care is essential to prevent emergency room visits.   Chapters 00:00 - Introduction to the Future of Dermatology Podcast 01:35 - Understanding Hidradenitis Suppurativa (HS) 05:02 - Optimizing the HS Clinic Visit 07:03 - Building Trust and Communication in Patient Visits 08:01 - Treatment Approaches for HS 10:52 - Follow-Up and Patient Empowerment

Infectious Disease Puscast
Infectious Disease Puscast #73

Infectious Disease Puscast

Play Episode Listen Later Feb 4, 2025 33:26


On episode #73 of the Infectious Disease Puscast, Daniel and Sara review the infectious disease literature for the weeks of 1/16/25 – 1/29/25. Hosts: Daniel Griffin and Sara Dong Subscribe (free): Apple Podcasts, RSS, email Become a patron of Puscast! Links for this episode Viral AGA clinical practice guideline on the prevention and treatment of hepatitis B virus reactivation (Gastroenterology) Host-microbe multiomic profiling identifies distinct COVID-19 immune dysregulation in solid organ transplant recipients (Nature Communications) Insect-specific RNA viruses detection in Field-Caught Aedes aegypti mosquitoes from Argentina using NGS technology (PLoS Neglected Tropical Diseases) Bacterial Oral regimens for rifampin-resistant, fluoroquinolone-susceptible tuberculosis (NEJM) Impact of antibiotic treatment and predictors for subsequent infections in multidrug-resistant Pseudomonas aeruginosa catheter-associated asymptomatic bacteriuria (American Journal of Infection Control) Identification of the skip phenomenon among patients With Staphylococcus lugdunensis infective endocarditis (OFID) Emergence of infective endocarditis due to Serratia spp. (OFID) Reduction of vancomycin-associated acute kidney injury with montelukast (JID) Fungal The Last of US Season 2 (YouTube) Pulmonary co-infection of Pneumocystis jirovecii and Aspergillus species (OFID) Impact of fluconazoleon outcomes of patients with primary pulmonary coccidioidomycosis (CID) Parasitic Comparative outcomes of Babesiosis in immunocompromised and non-immunocompromised hosts (CID) Miscellaneous Hidradenitis suppurativa (LANCET) A severe case associated with mixed infections of Pasteurella multocida, Bacteroides pyogenes and Fusobacterium necrophorum due to a snow leopard bite (CMI: Clinical Microbiology and Infection) INSIDE-OUT: Introduction of speakers at IDWeek events (OFID) Music is by Ronald Jenkees Information on this podcast should not be considered as medical advice.

GPnotebook Podcast
Ep 141 – Hidradenitis suppurativa

GPnotebook Podcast

Play Episode Listen Later Jan 30, 2025 14:27


Hidradenitis suppurativa (HS) is a chronic inflammatory dermatosis that typically affects areas of pilosebaceous gland-containing skin. In HS, patients often suffer recurrent attacks of discharging and painful lesions that can require multiple courses of antibiotics or surgical drainage. The condition causes significant morbidity, distress and sometimes long-term scarring. In this episode, Dr Roger Henderson looks at the disease process, classification and classical features of HS as well as conservative, medical and surgical treatment options.Access episode show notes containing key references and take-home points at:https://gpnotebook.com/en-GB/podcasts/dermatology/ep-141-hidradenitis-suppurativa.Did you know? With GPnotebook Pro, you can earn CPD credits by tracking the podcast episodes you listen to. Learn more.

Derms and Conditions
Hidradenitis Suppurativa: Can You Move the Needle to Achieve Better Outcomes?

Derms and Conditions

Play Episode Listen Later Jan 23, 2025 27:22


In this episode of Derms and Conditions, host James Q. Del Rosso, DO, welcomes Michael Payette, MD, a dermatologist in private practice at Central Connecticut Dermatology, to discuss practical approaches to managing hidradenitis suppurativa (HS). Dr Payette shares his experience establishing a dedicated HS clinic and provides insights into addressing diagnostic delays, patient education, and emerging treatments. They begin by discussing the importance of outreach and education to raise awareness of HS among non-dermatology health care providers, such as OB-GYNs and urgent care practitioners, highlighting how early referral and intervention can prevent long-term complications such as scarring and sinus tract formation. They then explore the role of GLP-1 therapies and biologics in HS treatment. Dr Payette shares his multimodal approach, explaining how GLP-1s address an underlying cause of inflammation while biologics target active inflammation. He outlines practical tips for managing insurance approvals and counseling patients on the benefits and potential side effects of these therapies. The episode also covers strategies for discussing lifestyle changes, such as weight loss and smoking cessation, while being sensitive to patient challenges. Dr Payette notes that combining weight reduction with biologics can often yield good outcomes, helping patients achieve better disease control and remission. Tune in to the full episode to learn how a systematic, patient-centered approach to HS management can improve outcomes for this challenging condition.

The Dermalorian Podcast
Time On Their Side: Strategies to Manage Hidradenitis Suppurativa

The Dermalorian Podcast

Play Episode Listen Later Dec 18, 2024 18:40 Transcription Available


Therapeutic advancements make it possible for more people to get control of HS, but significant challenges to diagnosis and long-term management remain. Alexa Hetzel, MS, PA-C provides an overview of medical and procedural treatment options and emphasizes the importance of spending time with patients and letting them know you are their ally in care. Plus, April Armstrong, MD, MPH gives an update on OX inhibitors, and Sandri Johnson, MSN, FNP-BC addresses approaches to vitiligo treatment.Like what you're hearing? Want to learn more about the Dermatology Education Foundation? Explore assets and resources on our website.

Managed Care Cast
Breaking the Cycle: The Importance of Early Intervention in Hidradenitis Suppurativa

Managed Care Cast

Play Episode Listen Later Oct 29, 2024 13:46


Prompt care supports mental well-being, as hidradenitis suppurativa is often associated with depression and anxiety due to its physical and social challenges.

JAMA Network
JAMA Dermatology : Hidradenitis Suppurativa and Maternal and Offspring Outcomes

JAMA Network

Play Episode Listen Later Oct 16, 2024 17:37


Interview with Nathalie Auger, MD, MSc, and Vincent Piguet, MD, PhD, authors of Hidradenitis Suppurativa and Maternal and Offspring Outcomes. Hosted by Adewole S. Adamson, MD. Related Content: Hidradenitis Suppurativa and Maternal and Offspring Outcomes

JAMA Dermatology Author Interviews: Covering research on the skin, its diseases, and their treatment

Interview with Nathalie Auger, MD, MSc, and Vincent Piguet, MD, PhD, authors of Hidradenitis Suppurativa and Maternal and Offspring Outcomes. Hosted by Adewole S. Adamson, MD. Related Content: Hidradenitis Suppurativa and Maternal and Offspring Outcomes

PeDRA Pearls
Unraveling HS: Exploring Hidradenitis Suppurativa Research - Episode Three

PeDRA Pearls

Play Episode Listen Later Oct 2, 2024 41:49


In episode three of Unraveling HS, Brindley Brooks, Founder and Executive Director of HS Connect, and Dr. Ginette Okoye, Professor of Dermatology at Howard University, discuss the future of research and the importance of integrating the patient voice in research and clinical trials.Please click here to learn more about the resources HS Connect can offer patients and caregivers. The HS Foundation is hosting its annual Symposium on Hidradenitis Suppartiva Advances in Dallas, TX November 1-3, to learn more click here. To access additional HS educational resources PeDRA offers, please click here.

Plant Based Briefing
896: Dietary Cure for Hidradenitis Suppurativa by Dr. Michael Greger at NutritionFacts.org

Plant Based Briefing

Play Episode Listen Later Sep 30, 2024 9:39


Dietary Cure for Hidradenitis Suppurativa by Dr. Michael Greger at NutritionFacts.org Original post: https://nutritionfacts.org/blog/dietary-cure-for-hidradenitis-suppurativa/  Related Episodes: 374: [Part 2] Healing Autoimmune Disease With Supermarket Foods. By Brooke Goldner, MD at  NutritionStudies.org   373: [Part 1] Healing Autoimmune Disease With Supermarket Foods. By Brooke Goldner, MD at  NutritionStudies.org Article from American Academy of Dermatology saying to ditch dairy: https://www.aad.org/public/diseases/a-z/hidradenitis-suppurativa-diet      Dr. Michael Greger is a physician, New York Times bestselling author, and internationally recognized speaker on nutrition, food safety, and public health issues. A founding member and Fellow of the American College of Lifestyle Medicine, Dr. Greger is licensed as a general practitioner specializing in clinical nutrition. He is a graduate of the Cornell University School of Agriculture and Tufts University School of Medicine. He founded NUTRITIONFACTS.ORG is a non-profit, non-commercial, science-based public service provided by Dr. Michael Greger, providing free updates on the latest in nutrition research via bite-sized videos. There are more than a thousand videos on nearly every aspect of healthy eating, with new videos and articles uploaded every day.   His latest books —How Not to Die, the How Not to Die Cookbook, and How Not to Diet — became instant New York Times Best Sellers. His two latest books, How to Survive a Pandemic and the How Not to Diet Cookbook were released in 2020.  100% of all proceeds he has ever received from his books, DVDs, and speaking engagements have always and will always be donated to charity.   How to support the podcast: Share with others. Recommend the podcast on your social media. Follow/subscribe to the show wherever you listen. Buy some vegan/plant based merch: https://www.plantbasedbriefing.com/shop    Follow Plant Based Briefing on social media: Twitter: @PlantBasedBrief YouTube: YouTube.com/PlantBasedBriefing  Facebook: Facebook.com/PlantBasedBriefing  LinkedIn: Plant Based Briefing Podcast Instagram: @PlantBasedBriefing   #vegan #plantbased #plantbasedbriefing #boils #acne #hidradenitissuppurativa #ditchdairy #dairy #crohns  

Derms and Conditions
Comprehensive Management of Hidradenitis Suppurativa: Moving the Needle Forward for Our Patients

Derms and Conditions

Play Episode Listen Later Sep 18, 2024 29:44


In this episode of Derms and Conditions, host James Del Rosso sits down with Dr Jessica Kaffenberger, an associate professor in dermatology at Ohio State University in Columbus, Ohio, to discuss the latest in hidradenitis suppurativa (HS) management. From navigating treatment challenges to addressing patient concerns, Dr Kaffenberger shares valuable insights on bridging older therapies with biologics, early diagnosis, and the importance of mental health and other forms of support to reduce risk factors for progression of HS, such as smoking cessation and weight reduction.  The discussion begins with a reflection on traditional therapies used for HS, such as antibiotics and intralesional injections, and how they were often insufficient in managing the condition. Dr Kaffenberger emphasizes the importance of being proactive with treatment, especially with the use of biologics earlier in the course of the disease, even for patients with moderate HS. They also address the limitations of the Hurley staging system for HS, which, as a system based on visible disease severity, often delays biologic treatment until irreversible damage has occurred. Dr Kaffenberger calls for earlier use of biologics to prevent chronic sequelae. She also highlights the difficulty of obtaining insurance approval for biologics at early stages of the disease and recommends using templates from the HS Foundation to support prior authorizations. Dr Kaffenberger then stresses the importance of early diagnosis, noting that HS is often misdiagnosed as sporadically occurring abscesses or cysts. She encourages health care providers to look for early signs like double-headed comedones and recommends laser hair removal as an early intervention strategy. Addressing the psychological burden of HS, they highlight the high rates of anxiety, depression, and suicidal ideation among patients. Dr Kaffenberger advises dermatologists to build rapport, connect patients with mental health resources, and consider the impact of weight loss and smoking cessation in managing HS, while approaching conversations nonjudgmentally. Tune in to the full episode for a comprehensive look at HS management and how dermatologists can improve outcomes for their patients.

Derms and Conditions
Improving Outcomes for Hidradenitis Suppurativa? Picking the Right Partners for the Ultimate Duet

Derms and Conditions

Play Episode Listen Later Aug 1, 2024 26:22


In this episode of Derms and Conditions, host James Q. Del Rosso, DO, and guests Michael Cameron, MD, and James Allred, MD, discuss the intersection of GLP-1 agents and dermatology, exploring how these drugs, initially designed for managing type 2 diabetes, are now offering promising benefits for skin conditions associated with obesity. They begin by providing an overview of glucagon-like peptide-1 (GLP-1) agents and their mechanisms of action. These drugs, which include terzepitide (marketed as Mounjaro and Zepbound) and semaglutide (available as Ozempic and Wegovy), are GLP-1 receptor agonists that enhance insulin secretion, reduce appetite, and promote weight loss. Dr Allred then shares his personal experience, noting that patients on GLP-1 therapy, prescribed by their primary care physicians, showed remarkable improvements in their hidradenitis suppurativa (HS) symptoms. Observing these benefits, he began prescribing GLP-1 agents himself. Although randomized controlled trials directly linking GLP-1 agents to HS improvement are lacking, clinical observations align with the understanding that obesity-related systemic inflammation impacts dermatologic conditions like HS and psoriasis. The conversation then shifts to discussing weight management with patients. They stress the importance of empathy and understanding, particularly for patients with HS who may find exercise counterproductive due to flare-ups. By explaining that reducing systemic inflammation through weight loss can significantly improve HS symptoms, they find patients more receptive to GLP-1 therapy. Finally, they cover the practical aspects of integrating GLP-1 prescribing into dermatologic practice. Drs Allred and Cameron advise on patient assessment, including checking BMI and potential contraindications like a history of thyroid cancer. They highlight the importance of monitoring basic labs, such as glucose, hemoglobin A1c, and lipid profiles, to track the therapy's impact and support insurance approvals. Tune in to learn how dermatologists can leverage GLP-1 agents to improve patient outcomes by addressing the inflammatory underpinnings of conditions like HS and enhancing overall quality of life.

Learn Skin with Dr. Raja and Dr. Hadar
Episode 193: Skin Substitutes and CAMPs in Dermatology

Learn Skin with Dr. Raja and Dr. Hadar

Play Episode Listen Later Jul 11, 2024 27:07


Looking for the latest research in skin substitutes? You're in luck. Join Dr. Robert Kirsner as he discusses CAMPs or cellular, acellular, and matrix products. Learn about their application for chronic wounds, ulcers, conditions such as HS, and how you can use them in your clinic. Each Thursday, join Dr. Raja and Dr. Hadar, board-certified dermatologists, as they share the latest evidence-based research in integrative dermatology. For access to CE/CME courses, become a member at LearnSkin.com.   Robert Kirsner, MD PHD is Chairman and the endowed Harvey Blank Professor in the Dr. Phillip Frost Department of Dermatology and Cutaneous Surgery and Professor of Public Health Sciences at the University of Miami Miller School of Medicine. He is Chief of Dermatology at the University of Miami Hospital and Clinics and Jackson Memorial Hospital and directs the University of Miami Hospital Wound Center. His research interests include Wound Healing and Skin Cancer Epidemiology. Dr. Kirsner serves as one of 3 academic editors for the journal Wound Repair and Regeneration and on the editorial boards for a number of other journals in dermatology and wound healing. Dr. Kirsner serves in national leadership positions in both Wound Healing and Dermatology, including being Vice President of the American Academy of Dermatology and serving on the Wound Healing Society Board of Directors.   Sponsored by University of Miami Visit University of Miami's website for more information. 

Spot Diagnosis
S6 E1 Clinical Cases in Hidradenitis Suppurativa

Spot Diagnosis

Play Episode Listen Later Jun 4, 2024 27:20


In honour of HS Awareness Week, we had consultant dermatologist and lead consultant of the Skin Health Institute HS Clinic, Dr Diana Norris join us on the Spot Diagnosis Podcast to delve into the complex condition that is hidradenitis suppurativa (HS). HS can be challenging to diagnose and manage, and it is pivotal to address both the physical and psychological aspects of the condition to optimise patient care. In this episode, we clarify misconceptions and discuss clinical cases to provide valuable insights into the various HS presentations and treatment approaches, helping to improve understanding and outcomes for individuals affected by HS. https://skinhealthinstitute.org.au/spot-diagnosis/clinical-cases-in-hidradenitis-suppurativa/See omnystudio.com/listener for privacy information.

LivDerm Digital Highlights Hub
Targeted Intervention for Hidradenitis Suppurativa: Defining Window of Opportunity for Moderate-to-Severe Patients

LivDerm Digital Highlights Hub

Play Episode Listen Later May 30, 2024 38:19


This special podcast episode, developed in collaboration with UCB, features LiVDerm faculty and esteemed dermatologists Dr. Jennifer Hsiao, MD, and Dr. Hadar Lev-Tov, MD. As experts in all things hidradenitis suppurativa (HS), our faculty discuss the need for early and accurate diagnosis and assessment of patients with HS in order to prescribe treatment at the best time to achieve disease control, including the following topics: Key challenges in treating patients with moderate-to-severe HS The role of targeted, systemic therapies in HS management Defining "moderate" disease and strategies for severity assessment Defining window of opportunity and strategies for advanced treatment of HS Defining and assessing treatment response and success with targeted therapies

Feel Better, Feel Great Podcast
Hidradenitis Suppurativa: A Very Significant Skin Condition

Feel Better, Feel Great Podcast

Play Episode Listen Later May 22, 2024 24:21


Welcome to the Feel Better Feel Great Podcast! I'm Dr. Andrea McSwain, and if you're just discovering this show, I'm thrilled to have you join us. As a dedicated DO, I've always been driven by the pursuit of understanding the root cause of issues. With a background in conventional OBGYN training and a deep connection to five generations of classical Osteopathic tradition, coupled with my upbringing in a holistic environment, I bring a unique expertise to the table. Whether you're currently struggling with health concerns or simply aiming to enhance your well-being, this podcast is here to equip you with practical tools for feeling your best. I am an expert, but you are an expert in you! Let's embark on a journey to not just feeling good, but to feeling great! In this episode, we dive into the complexities of hidradenitis suppurativa (HS), a painful and often misunderstood skin condition that causes debilitating abscesses and cysts in areas where skin rubs together. We explore how HS impacts patients' quality of life, often leading to misdiagnosis and stigmatization due to its severe symptoms and chronic nature. The episode also highlights the various conventional and holistic treatment options available, emphasizing the importance of addressing both the physical and emotional toll of the condition. Through compelling patient stories and expert insights, we aim to shed light on this challenging medical issue and advocate for better awareness and care.    Join our Facebook community: https://www.facebook.com/groups/146473462706996  Want more tools to feel GREAT? Online courses: https://drmcswain.com Supplements: Shop now with code FEELGREAT15 for 15% off your first order! https://shopvrx.com/ Check out the HS Foundation: https://www.hs-foundation.org/ Visit the Boil Queen on Instagram: https://www.instagram.com/theboilqueen/ Follow me on social!  https://www.facebook.com/drmcswain  https://www.instagram.com/dr.mcswain/ https://www.linkedin.com/in/dr-andrea-mcswain/ Music: Mykola Sosin

PeDRA Pearls
Unraveling HS: Exploring Hidradenitis Suppurativa Research - Episode Two

PeDRA Pearls

Play Episode Listen Later May 1, 2024 70:25


In the second episode of Unraveling HS, program hosts Dr. Colleen Cotton and Dr. Irene Lara-Corrales are joined by expert panelists Dr. Jennifer Ruth, Dr. Jennifer Hsiao, and Dr. Rebecca Levy to examine five distinct HS cases. Listen in as they share insights on biosimilars, HS in Down syndrome, and managing comorbidities in both multidisciplinary and non-multidisciplinary clinical settings.

The Healthy Skin Show
338: How to Stop The Pain of HS: Hidradenitis Suppurativa Treatment + Remedies w/ Dr. Steven Daveluy

The Healthy Skin Show

Play Episode Listen Later Apr 25, 2024 40:17


Finding a hidradenitis suppurativa treatment that works can be frustrating and difficult, especially with certain symptoms like intense pain.Hidradenitis suppurativa (HS) pain can severely impact your day to day quality of life — I speak from experience here!When I first discovered a swollen, painful lump in my armpit, I panicked, and immediately worried about getting checked for breast cancer. Fortunately, the lump wasn't cancer – it was hidradenitis suppurativa.For me, laser hair removal was the key to stopping hidradenitis suppurativa symptoms in their tracks, but that's not the case for everyone. Plus, laser hair removal isn't always a permanent solution.Because I personally know how awful this skin condition can be, I want to share more on what causes hidradenitis suppurativa pain, how the immune system and inflammation play a role here, as well as sharing some hidradenitis suppurative home remedies and other conventional treatment options.Dr. Steven Daveluy is back to share more on HS! He is an associate professor and program director at Wayne State University in Detroit, Michigan, and holds special interests in teledermatology, noninvasive skin imaging, skin of color, integrative dermatology, and complex medical dermatology, including hidradenitis suppurativa (HS).Dr. Daveluy serves on the board of the Hidradenitis Suppurativa Foundation. He serves on the editorial board for the JAAD and is building a growing body of publications of his own.Let's dive into this really important topic!In This Episode:What causes hidradenitis suppurativa (HS) pain?Hidradeniis suppurativa tunnelsImmune response, cytokines + hidradenitis suppurativa symptomsNew research bacteria found in the fluid + pus from HS lesionsStages of HS (hidradenitis suppurativa)Can HS surgery help with pain?Is laser hair removal a permanent hidradenitis suppurativa treatment?Hidradenitis suppurativa home remediesHow to get help with pain management because of HSMedication options for hidradenitis suppurativa treatmentQuotes“Even where you don't have lesions, your skin microbiome is still different than someone who doesn't have HS, which then sort of talks to this picture of HS isn't just something in your hair follicles, it's something that affects your whole body. And things are different in your gut, in your skin, in the skin that doesn't even have HS lesions. Things are just really out of balance.”“...It's not to say that stage one can't be severely painful, but as a general trend, the more tissue damage you have, the more risk you have for the pain becoming more severe.”LinksFind Dr. Daveluy on Instagram | TwitterHS Foundation websiteHealthy Skin Show ep. 103: Hidradenitis Suppurativa: The Tip That Stopped My FlaresHealthy Skin Show ep. 232: How Yeast + Zinc Can Play A Role In Hidradenitis Suppurativa w/ Steve Daveluy, MD

Derms and Conditions
Comprehensive Management of Hidradenitis Suppurativa: Expert Insights From Dr Jennifer Hsiao

Derms and Conditions

Play Episode Listen Later Mar 28, 2024 26:55


In this episode of Derms and Conditions, host James Q Del Rosso, DO, sits down with Jennifer Hsiao, MD, associate professor of clinical dermatology at Keck Medicine of University of Southern California, to discuss the multifaceted world of hidradenitis suppurativa (HS). From addressing diagnostic obstacles to understanding comorbidities, this episode guides clinicians through the many complexities of HS management. They begin by exploring the diagnostic hurdles associated with HS, with Dr Hsiao sharing insights to help clinicians navigate through potential misdiagnoses. She emphasizes the importance of recognizing subtle indicators of the disease and thinking outside the box when it comes to the location of lesions, as they may present in atypical areas. She also highlights the significance of recurrent history, which can serve as a diagnostic hallmark. Next, the pair discusses comorbidities associated with HS, with Dr Hsiao detailing the importance of inquiring about patients' primary care arrangements. She notes that while dermatologists may not directly manage these comorbidities, they can play a vital role in identifying and initiating the necessary steps toward management. The discussion then moves to the significant psychological impact of HS, emphasizing the necessity of open dialogue with patients about the psychological toll of HS and the benefits of seeking mental health support. Screening tools like the PHQ-2 can aid in identifying patients at risk and initiating necessary interventions. They next address the limitations of current clinical guidelines for HS and the need for a paradigm shift towards intervening earlier in the disease process to prevent irreversible tissue damage. The discussion concludes with the presentation of a clinical scenario describing a patient transitioning from oral antibiotics to a biologic, with Dr Hsiao outlining her suggested approach for such a patient.

PeDRA Pearls
Monday Rerelease: Getting to Know You: Irene Lara-Corrales, MD

PeDRA Pearls

Play Episode Listen Later Mar 25, 2024 19:52


April 20, 2023Irene Lara-Corrales, MD is an associate professor of dermatology at the University of Toronto and a pediatric dermatologist at The Hospital for Sick Children (SickKids) in Toronto, Canada. She always knew she wanted to be a pediatric dermatologist, and her interest in epidermolysis bullosa (EB) grew deeper after treating a young baby with EB during her residency in Costa Rica. Most recently, she's been championing Hidradenitis Suppurativa within PeDRA and the greater pediatric dermatology research community. Watch or listen to learn more about her passions, including her love of books and tea. To listen to the new podcast - Unraveling HS, please click here.

Learn Skin with Dr. Raja and Dr. Hadar
Episode 178: Hidradenitis Suppurativa

Learn Skin with Dr. Raja and Dr. Hadar

Play Episode Listen Later Mar 21, 2024 30:28


Looking for some optimism around HS treatments? We've got it here. This week, we're joined by Dr. Joslyn Kirby as she shares her experience in working with HS and talks the nuts and bolts of HS with diagnosis, pathogenesis, and novel treatment options coming down the pipeline. Each Thursday, join Dr. Raja and Dr. Hadar, board-certified dermatologists, as they share the latest evidence-based research in integrative dermatology. To learn more about HS and earn free CME credits, visit LearnSkin.com to enroll in the HS: Examining the Role of Immunology and Inflammation with Biologics and JAK Inhibition series.   Dr. Joslyn Kirby is a Professor of Dermatology at Penn State Hershey and Past President of the Hidradenitis Suppurativa Foundation. In clinic and through her research, she is focused on hidradenitis suppurativa, including its effects on people and outcome measurement.   Supported by independent educational grants from Incyte and UCB

The Skin Real
The chronic skin condition you've never heard of Hidradenitis Supprativa

The Skin Real

Play Episode Listen Later Mar 18, 2024 41:19


Ever wonder why you get those painful lesions in areas where your skin rubs together? It might be Hidradenitis Suppurativa (HS), also known as acne inversa! Dealing with HS can be challenging both physically and emotionally. The pain, discomfort, and embarrassment associated with the condition can take a toll on one's quality of life.   Hidradenitis Suppurativa (HS) can be a frustrating condition, and there's a lot of misinformation out there. Ready to separate fact from fiction about Hidradenitis Suppurativa? Join Dr. Sayed and me on this week's podcast episode as we uncover the truth behind common misconceptions and discuss effective treatment options! For more information on HS, check out the Hidradenitis Suppurativa Foundation and other reliable sources for valuable information and resources.   In this episode:   What is Hidradenitis Suppurativa? (5:33) Misconceptions about HS (9:35) Who is affected by HS? (18:24) Websites and Support Groups for HS (28:45) Treatment Options for HS (30:37) Top 3 pearls for someone with HS (35:35)   Dr. Sayed is director of the HS Clinic and Professor of Dermatology at the University of North Carolina at Chapel Hill.  He's on the board of the directors for the HS Foundation and an investigator for several clinical trials for HS and NIH-funded research on the genetics of HS.   For more information on HS, check out the Hidradenitis Suppurativa Foundation and other reliable sources for valuable information and resources.   Follow Dr. Mina here:-  https://instagram.com/drminaskin   For more great skin care tips, subscribe to The Skin Real Podcast or visit www.theskinreal.com  Baucom & Mina Derm Surgery, LLC  Email - scheduling@atlantadermsurgery.com Contact - (404) 844-0496  Instagram - @baucomminamd Thanks for listening! The content of this podcast is for entertainment, educational, and informational purposes and does not constitute formal medical advice.

Filled Up Cup
Ep. 84 Jasmine Ivanna Espy

Filled Up Cup

Play Episode Play 30 sec Highlight Listen Later Mar 6, 2024 44:02 Transcription Available


On this episode, I am joined by Jasmine Ivanna Espy. We discuss her experience with having hidradenitis suppurativa. It can be a condition that feels lonely and at times has felt embarrassing. She has prioritized helping others not feel the same and bringing awareness to this condition.  Hidradenitis suppurativa or HS is s painful, long-term skin condition that causes skin abscesses and scarring on the skin. She founded the Association of Hidradenitis Suppurativa and Inflammatory Diseases. They want to empower people living with HS to better understand their disease state and take courageous action toward receiving treatment, engaging with the community, and improving their overall quality of life. Every year they host an annual summit. This year it will be held June 6-8th, 2024 in Detroit, Michigan. It will be 3 days filled with sessions, demonstrations, workshops, and community engagement opportunities.I RECLAIM__ HIDRADENITIS SUPPURATIVA SUMMIT — The AHSID2023 Hidradenitis Suppurativa Basics Booklet (adobe.com)Jasmine “IVANNA” (@whoisivanna) • Instagram photos and videosAHSID (@theahsid) • Instagram photos and videosAshley (@filledupcup_) • Instagram photos and videosFilled Up Cup - Unconventional Self Care for Modern WomenImproving DailyI want to help people with their personal growth by sharing life lessons from my lifeListen on: Apple Podcasts Spotify

PeDRA Pearls
Unraveling HS: Exploring Hidradenitis Suppurativa Research - Episode One

PeDRA Pearls

Play Episode Listen Later Mar 6, 2024 57:58


Hidradenitis Suppurativa (HS) expert, Haley Naik, MD of the University of California, San Fransisco joins Drs. Cotton and Lara-Corrales for a comprehensive discussion about diagnosis and treating early onset HS in the clinic and highlights the specific research taking place globally to help change outcomes for pediatric patients suffering from this devastating condition.

PeDRA Pearls
Monday Re-release: Hidradenitis Suppurativa in the Pediatric Population

PeDRA Pearls

Play Episode Listen Later Feb 26, 2024 18:04


As we gear up to release the first episode of our new Hidradenitis Suppurativa Podcast series, we dipping into the archives for a publication presentation from Dr. Irene Lara-Corrales about this international, multicenter, retrospective, cross-sectional study of 481 pediatric patients revealed a gap in diagnosis, and that HS patients are likely to suffer from other comorbidities. Learn more about the study, recommendations for managing patients with HS, and recommendations for future research. To view the video version of this presentation, please click here. Stay tuned for the upcoming HS series!

Heal Thy Skin by Dermhealth.co |
(Rerun) Hidradenitis Suppurativa: Coping, Support, and Living Well with Kathryn Shusta, HS Advocate

Heal Thy Skin by Dermhealth.co |

Play Episode Listen Later Feb 21, 2024 56:34


Hidradenitis Suppurativa (HS) is a chronic, inflammatory skin condition that causes recurrent and painful nodules, boils, abscesses and lesions of the skin.   Living with a chronic skin condition like HS is not just about managing physical symptoms and flare-ups. Living with a recurring, painful and sometimes visible condition can impact a person's emotions, social life and relationships. HS presents on the skin, but it can really take a toll on the whole body, emotionally and physically. There are a lot more nights in and a lot more ‘self-care.   In this podcast episode, Marni spoke with Kathryn Shusta, creator of KS and HS.    Kathryn started her HS advocacy work in 2020 by creating KS and HS, an Instagram page that raises awareness of HS and what it is like to live with a chronic illness. She was not diagnosed with HS until she was 17 years old, 7 years after her first HS flare. Unfortunately, this is a common occurrence for people with Hidradenitis Suppurativa. Kathryn began her Instagram as an outlet for her feelings about HS. Since then, she has found advocating and helping others to be rewarding and inspiring. She uses her background is in social work and public administration to inform her practice in advocacy. She promotes information based on research and evidence-based best practices through the lens of her own HS experiences. For fun, Kathryn likes to crochet while watching her favourite movies and go on adventures in her hometown. Join us in this incredible episode as Kathryn uncovers the biggest misconceptions and shares first-hand experience with Hidradenitis Suppurativa.   Learn more about Kathryn Shusta here: Website: ⁠https://ksandhs.com/⁠ Instagram: @ksandhs   Resources: ⁠https://www.hs-foundation.org/⁠ ⁠https://www.nobsabouths.com/⁠ ⁠https://hsdisease.com/⁠   Be sure to subscribe to the podcast! And follow us on Instagram @dermhealth.co or visit us online at https://www.dermhealth.co/   ----   This episode is powered by Digital Health Co  

JAMA Network
JAMA Dermatology : Efficacy and Durability of Intravenous Ertapenem Therapy for Recalcitrant Hidradenitis Suppurativa

JAMA Network

Play Episode Listen Later Feb 14, 2024 20:21


Interview with Steven R. Cohen, MD, MPH, author of Efficacy and Durability of Intravenous Ertapenem Therapy for Recalcitrant Hidradenitis Suppurativa. Hosted by Adewole S. Adamson, MD, MPP. Related Content: Efficacy and Durability of Intravenous Ertapenem Therapy for Recalcitrant Hidradenitis Suppurativa

JAMA Dermatology Author Interviews: Covering research on the skin, its diseases, and their treatment
Efficacy and Durability of Intravenous Ertapenem Therapy for Recalcitrant Hidradenitis Suppurativa

JAMA Dermatology Author Interviews: Covering research on the skin, its diseases, and their treatment

Play Episode Listen Later Feb 14, 2024 20:21


Interview with Steven R. Cohen, MD, MPH, author of Efficacy and Durability of Intravenous Ertapenem Therapy for Recalcitrant Hidradenitis Suppurativa. Hosted by Adewole S. Adamson, MD, MPP. Related Content: Efficacy and Durability of Intravenous Ertapenem Therapy for Recalcitrant Hidradenitis Suppurativa

PeDRA Pearls
Community Spotlight: The Association of Hidradenitis Suppurativa and Inflammatory Diseases

PeDRA Pearls

Play Episode Listen Later Feb 8, 2024 12:25


In this mini Community Spotlight, PeDRA shines a light on The Association of Hidradenitis Suppurativa and Inflammatory Diseases (AHSID). Learn about the work AHSID does for the patient and provider communities in an interview with founder and CEO Jasmine Espy.AHSID has volunteer opportunities! If you are interested in volunteering, please click here to apply.To view the video version of this interview, please click here.

The Skinny Dipping Rx
Shedding The Shame of Hidradenitis Suppurativa: A Conversation with Brindley Brooks

The Skinny Dipping Rx

Play Episode Listen Later Jan 6, 2024 48:28


If you've never heard of Hidradenitis Suppurativa (HS), you're not alone, but more than likely you know someone who may be silently suffering with this chronic inflammatory skin condition.HS can affect our most intimate places on our physical body causing pain, discomfort and disability. HS also can have a profound impact beneath the surface on our psychosocial wellbeing.Even if you don't have HS, no doubt at some point in your life you have experienced a felt sense of shame, a universal experience, that makes this episode one you're going to want to tune into.In this episode, we are stripping down the myths and misconceptions about HS, reveal how best to navigate living with it as well as shine a spotlight on how to shed the shame that keeps too many people hiding in plain sight when it comes to living with HS (or any other challenge for that matter.)I'm grateful that Brindley Brooks, the Founder and Executive Director of HS Connect, a patient led non profit advocacy group for those with Hidradenitis Suppurativa (HS) is my guest and sharing her story of living with this disease. She's suffered with HS for 34 years and was silent about her battle for the majority of that time, it wasn't until she had wide excision surgery for her HS that she started the conversation and now she can't stop!So grab your favorite beverage and get cozy, because if you've ever felt unseen and unheard, especially when dealing with a medical issue, you are gonna want to listen to this.Host: Dr. Keira BarrDISCLAIMERThis podcast is meant for educational and informational purposes only. Neither this podcast nor any information contained within it are a substitute for professional care by a doctor or other qualified medical professional. This podcast does not constitute medical or other professional advice or services. If you have a medical concern, please consult with your physician. Connect with Dr. KeiraIf you want to start feeling comfortable in your skin right away, take the free Skincare QuizCome hang out on Instagram with me!Grab a copy of my book, The Skin Whisperer.Connect with Brindley:HSConnect.Org Website: https://www.hsconnect.org/Social Media: Instagram, Facebook 

PeDRA Pearls
Monday Rerelease: Points of Discussion - Should Pediatric Hidradenitis Suppurativa be Treated Aggressively?

PeDRA Pearls

Play Episode Listen Later Dec 18, 2023 43:24


Presented by the Acne and Hidradenitis Focused Study Group and moderated by Dr. Irene Lara-Corrales, Drs. A. Yasmine Kirkorian, and Izzy Andrews discuss the treatment options for pediatric hidradenitis suppurativa and highlight the research that is still needed to understand and treat this devasting disease effectively. Listen to learn more. The program originally aired in May of 2022.

PeDRA Pearls
PeDRA at the Symposium on Hidradenitis Suppurativa Advances - Part One

PeDRA Pearls

Play Episode Listen Later Oct 23, 2023 33:43


PeDRA had the privilege of attending the Symposium on Hidradenitis Suppurativa Advances (SHSA) in Phoenix, AZ in October 2023. During the meeting, PeDRA's Associate Director of Educational Programs interviewed three amazing presenters to discuss the incredible work being done in this space. First up is Lynn Petukhova, PhD, discussing her ground-breaking work in Hidradenitis Suppurativa (HS) genetics and how she harnesses the power of genome-wide association studies (GWAS). Following this, you'll gain insight into more HS research through two poster interviews with MD candidates Nicholas Chiang and Sydney Dong, respectively. For more information on Dr. Petukhova's work, or to submit a case study, please visit the Columbia University Data Science Institute. SHSA is an annual meeting organized by the Hidradenitis Suppurativa Foundation (HSF) to bring experts from around the world to share their experiences with HS.

PeDRA Pearls
PeDRA at the Symposium on Hidradenitis Suppurativa Advances - Part Two

PeDRA Pearls

Play Episode Listen Later Oct 23, 2023 7:04


PeDRA member, Colleen Cotton, MD, recently presented at the 2023 Symposium on Hidradenitis Suppurativa Advances (SHSA). In this episode, Dr. Colleen Cotton sits down with PeDRA to give a quick summary of the SHSA meeting and make a special announcement about an upcoming PeDRA educational initiative. SHSA is an annual meeting organized by the Hidradenitis Suppurativa Foundation (HSF) to bring experts from around the world to share their experiences with HS. ICYMI: PeDRA is thrilled to support HS Research through the 2023 Hidradenitis Suppurativa Pilot Grant! The deadline to apply is December 7, 2023 and you can learn more here.

AAD's Dialogues in Dermatology
October JAAD: Adalimumab in conjunction with surgery compared with adalimumab monotherapy for Hidradenitis Suppurativa: A randomized controlled trial in a real-world setting

AAD's Dialogues in Dermatology

Play Episode Listen Later Oct 10, 2023


Hand Me My Purse.
No. 67: A Real Conversation About Hidradenitis Suppurativa w/Jasmine IVANNA Espy. PART TWO.

Hand Me My Purse.

Play Episode Listen Later Oct 4, 2023 50:47 Transcription Available


Hey Friends & Kin!   FYI: THIS, JUST LIKE ALL EPISODES OF HAND ME MY PURSE, CONTAINS PROFANITY. THIS PODCAST IS FOR ADULTS AND CONTAINS ADULT CONTENT. Now that we've gotten that out of the way... _________   Friends and Kin in this episode I had the pleasure of interviewing an amazing sista with a story that definitely should be shared. Jasmine IVANNA Espy, 29, influencer, filmmaker and advocate is a co-producer on the upcoming documentary, “The Beacons: Illuminating HS Stories,” a new docuseries from Novartis that highlights her story and others living with Hidradenitis Suppurativa (HS), a disfiguring skin disease with no cure that causes small, painful lumps to form under the skin. HS is estimated to affect as many as 1 in 100 people worldwide. Black women under the age of 40 have the highest risk of developing HS and may also have more severe cases than white people. Despite this disparity, they tend to go longer without a diagnosis or treatment.     In Part Two of this conversation, Jasmine shares her experience with HS & how it has affected how she navigates life. She tells us about how this condition affects her as a grown woman, her mental health and social interaction. Jasmine also shares how she has used her voice to advocate for herself and others with HS. Jasmine took a diagnose that caused a lot of trauma as a young girl and has flipped it on its head to go out into the world and make a difference. She is a superhero! This conversation is one of the reasons I started this podcast, as there are so many stories in our community that are untold. It's time to share them! Enjoy!

Hand Me My Purse.
No. 67: A Real Conversation About Hidradenitis Suppurativa w/Jasmine IVANNA Espy. PART ONE.

Hand Me My Purse.

Play Episode Listen Later Oct 3, 2023 51:37 Transcription Available


Hey Friends & Kin!   FYI: THIS, JUST LIKE ALL EPISODES OF HAND ME MY PURSE, CONTAINS PROFANITY. THIS PODCAST IS FOR ADULTS AND CONTAINS ADULT CONTENT. Now that we've gotten that out of the way... _________   Friends and Kin in this episode I had the pleasure of interviewing an amazing sista with a story that definitely should be shared. Jasmine IVANNA Espy, 29, influencer, filmmaker and advocate is a co-producer on the upcoming documentary, “The Beacons: Illuminating HS Stories,” a new docuseries from Novartis that highlights her story and others living with Hidradenitis Suppurativa (HS), a disfiguring skin disease with no cure that causes small, painful lumps to form under the skin. HS is estimated to affect as many as 1 in 100 people worldwide. Black women under the age of 40 have the highest risk of developing HS and may also have more severe cases than white people. Despite this disparity, they tend to go longer without a diagnosis or treatment.     In Part Two of this conversation, Jasmine shares her experience with HS & how it has affected how she navigates life. She tells us about how this condition affects her as a grown woman, her mental health and social interaction. Jasmine also shares how she has used her voice to advocate for herself and others with HS. Jasmine took a diagnose that caused a lot of trauma as a young girl and has flipped it on its head to go out into the world and make a difference. She is a superhero! This conversation is one of the reasons I started this podcast, as there are so many stories in our community that are untold. It's time to share them! Enjoy!

Hand Me My Purse.
No. 66: A Real Conversation About Hidradenitis Suppurativa w/Jasmine IVANNA Espy. PART ONE.

Hand Me My Purse.

Play Episode Listen Later Sep 26, 2023 54:38 Transcription Available


Hey Friends & Kin!   FYI: THIS, JUST LIKE ALL EPISODES OF HAND ME MY PURSE, CONTAINS PROFANITY. THIS PODCAST IS FOR ADULTS AND CONTAINS ADULT CONTENT. Now that we've gotten that out of the way... _________   Friends and Kin in this episode I had the pleasure of interviewing an amazing sista with a story that definitely should be shared. Jasmine IVANNA Espy, 29, influencer, filmmaker and advocate is a co-producer on the upcoming documentary, “The Beacons: Illuminating HS Stories,” a new docuseries from Novartis that highlights her story and others living with Hidradenitis Suppurativa (HS), a disfiguring skin disease with no cure that causes small, painful lumps to form under the skin. HS is estimated to affect as many as 1 in 100 people worldwide. Black women under the age of 40 have the highest risk of developing HS and may also have more severe cases than white people. Despite this disparity, they tend to go longer without a diagnosis or treatment.   In Part One of this conversation, Jasmine shares her experience with HS & how it has affected how she navigates life. She tells us about what it was like for her as when she was first diagnosed with HS and the ways it effected her as a young girl. This conversation is one of the reasons I started this podcast, as there are so many stories in our community that are untold. It's time to share them! Enjoy!

Skin The Surface
Ep. 83: Take Control of Hidradenitis Suppurativa

Skin The Surface

Play Episode Listen Later Sep 21, 2023 18:48


Dr. Rina discusses a skin inflammatory condition called Hidradenitis Suppurativa (HS), emerging therapies and its impact on mental health.

take control hidradenitis suppurativa hidradenitis suppurativa hs
Derm Club with Dr. Hannah Kopelman
#12 Hidradenitis Suppurativa and Metabolic Disorders | Dr. Iltefat Hamzavi

Derm Club with Dr. Hannah Kopelman

Play Episode Listen Later Aug 8, 2023 19:55


In this episode, we dissect the intricate dynamics of hidradenitis suppurativa, a chronic skin disease significantly impacting patients' lives. I have the pleasure of conversing with Dr. Iltefat Hamzavi, a leading dermatologist and researcher in the field. Together, we explore the intersections of this complex condition with metabolic disorders, as well as delve into its diagnosis, treatment options, and the roles genetics and hormones play. Please SUBSCRIBE to the Derm Club Podcast wherever you like to listen whether on YouTube, Apple, or Spotify. Together, let's explore the fascinating secrets of dermatology and skincare. To learn more about HS: https://www.hannahkopelman.com/blog/hidradenitis-suppurativa-and-metabolic-disorder/ Connect with me across Social: Twitter: https://twitter.com/drhankopelman Instagram: https://www.instagram.com/doctor.han/ TikTok: https://www.tiktok.com/@drhankopelman Blog: https://www.hannahkopelman.com/blog/ The content of this podcast is for entertainment and educational purposes only. This content is not meant to be a substitute for medical advice or treatment for any medical condition. --- Send in a voice message: https://podcasters.spotify.com/pod/show/hannah-kopelman/message

The Cabral Concept
2718: Tracking Digestion, Anxiety Medication, Sauna & Replenishing Minerals, Sleeping Temperature, Hidradenitis Suppurativa (HouseCall)

The Cabral Concept

Play Episode Listen Later Jul 16, 2023 18:35


Thank you for joining us for our 2nd Cabral HouseCall of the weekend! I'm looking forward to sharing with you some of our community's questions that have come in over the past few weeks…   Anonymous: Hi Dr. Cabral, I am almost done with the CBO protocol and i am so grateful to you and your team for all the support and resources you offer. I have been tracking my elimination to assess how my digestion is doing. However, it is a but tricky for me because i sometimes can not tell what causes reactions. If i have a healthy elimination today, and an imbalanced one the next day, how do i know when i ate the food that cause the imbalance? How long does it take for the food to go through the digestive tract and become eliminated? I have been finding varied answers online.   Victoria: Recently I've had a lot of anxiety that appears to be mental, but also lack of sleep / my period makes it worse. I've started having panic attacks when I'm in environments where I feel “unsafe” due to chronic and persistent vertigo I'd have for 4-5 years now (had full vestibular testing, MRI, cut out food sensitivities, tried low histamine diet, no avail). I eat all organic and very healthy. Tried your CBO, I take your supplements, etc. It's gotten to the point where I am thinking about considering anti anxiety medication, because otherwise I feel so stressed when even leaving my house. (I have very high cortisol) Do you think it could work if I tried the medication, used it to reset my nervous system, and then weaned off of it? I had lyme, mold in past and potentially a PTSD event   Erica: If I have a 2 high 2 low pattern on my HTMA test, would you recommend infrared sauna 4-5x a week? I have high levels of mold in my body and I'd like to start working on detoxing it out, but it seems like my sodium and potassium and both quite low and I'm wondering if it's a good idea. With that being said, if I did sauna that much a week, how much sodium / potassium might you recommend I take daily to replenish? Thank you!   Marianne: Hello doctor Cabral, Thank so much for your time and allowing us to ask these questions. I have one about sleep: I usually feel a bit cold when I go to sleep, so I wear socks and use thick covers. However, I often wake up in the middle of the night, because I'm feeling too hot. So I'm really not sure how to deal with this. I can't fall asleep if I'm too cold, but I keep waking up if I'm too hot. What would be your advice? Thanks so much! Marianne   Gillian: Hi Dr. Cabral. I am a 41 tear old woman and I've just found out i have Hydradenitis Supprativa. I want to avoid antibiotics, injections, hormones, etc. I'm currently beginning an elimination diet. Any other suggestions or products i can use would ve much appreciated. Please help.   Thank you for tuning into this weekend's Cabral HouseCalls and be sure to check back tomorrow for our Mindset & Motivation Monday show to get your week started off right! - - - Show Notes and Resources: StephenCabral.com/2718 - - - Get a FREE Copy of Dr. Cabral's Book: The Rain Barrel Effect - - - Join the Community & Get Your Questions Answered: CabralSupportGroup.com - - - Dr. Cabral's Most Popular At-Home Lab Tests: > Complete Minerals & Metals Test (Test for mineral imbalances & heavy metal toxicity) - - - > Complete Candida, Metabolic & Vitamins Test (Test for 75 biomarkers including yeast & bacterial gut overgrowth, as well as vitamin levels) - - - > Complete Stress, Mood & Metabolism Test (Discover your complete thyroid, adrenal, hormone, vitamin D & insulin levels) - - - > Complete Food Sensitivity Test (Find out your hidden food sensitivities) - - - > Complete Omega-3 & Inflammation Test (Discover your levels of inflammation related to your omega-6 to omega-3 levels) - - - Get Your Question Answered On An Upcoming HouseCall: StephenCabral.com/askcabral - - - Would You Take 30 Seconds To Rate & Review The Cabral Concept? The best way to help me spread our mission of true natural health is to pass on the good word, and I read and appreciate every review!  

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Sickboy
Sweat, Abscesses and Tears: Living with Hidradenitis Suppurativa

Sickboy

Play Episode Listen Later Apr 17, 2023 51:31


This week the fellas are joined by Hailey. They dive into a deep conversation about chronic illness and how it can shape one's identity. Hailey shares her experience with stage 3 HS, a disease so advanced that even healthcare professionals were left scratching their heads. For Hailey however she absolutely MUST NOT SCRATCH OR PICK FOR THE LOVE OF GOD! Hidradenitis suppurativa (HS) is a painful, long-term skin condition that causes abscesses and scarring on the skin. The exact cause of hidradenitis suppurativa is unknown, but it occurs near hair follicles where there are sweat glands, usually around the groin, bottom, breasts and armpits. She also reveals the struggles of trying to manage a serious illness without proper healthcare in the U.S. Hailey is an absolute warrior and a champ who's bright and uplifting demeanour is infectious and we are grateful to have had this conversation with her.

Phoenix Helix: Autoimmune Resilience
Episode 217: Healing Stories 10

Phoenix Helix: Autoimmune Resilience

Play Episode Listen Later Jan 6, 2023 74:15


If you're a regular listener of my podcast, you know that I start every year with a Healing Stories episode. It features back-to-back interviews with autoimmune warriors just like you! I ask them to share their journey from rock bottom to reclaiming a vital life. In this episode, we talk about Hashimoto's Thyroiditis, Hidradenitis Suppurativa, Ankylosing Spondylitis, Susac Syndrome. and also autoimmunity in general. Everyone's story is unique, but we also have so much in common. Whatever your diagnosis, I hope these stories resonate and inspire.

The Cabral Concept
2388: Constipation, Air Pollution, Natural Deodorant, Hidradenitis Suppurativa, Vitamin D & A Absorption, Hashimoto's (HouseCall)

The Cabral Concept

Play Episode Listen Later Aug 20, 2022 25:18


Welcome back to our weekend Cabral HouseCall shows! This is where we answer our community's wellness, weight loss, and anti-aging questions to help people get back on track! Check out today's questions:    Seth: Love your podcast. And love how you explain things. So many questions I could ask, but I'll start with these 2. First, I've dealt with slow parastoltic movement or just plain constipation for ever. I've tried it all. Nothing works. I eat tons of fiber, and I focus more on insoluble. But tell me if I'm wrong. Second question. I see you wearing a smart watch. Is the emf levels different on that one? I've always opted for no wearable and wired headphones etc. Thanks Doc!   Catherine: Hi Dr. Cabral! My family and I live in a city with very high pollution. We live near an industrial area and there are frequently odours. Some days are fine, it's dependant on wind direction. Due to finances, we don't have the option to move in the near term, however I do hope to move somewhere with better air quality eventually. I have bought Coway air filters for our home, but am nervous about regularly breathing in the air from outside. How large of an issue do you think this is? Should moving be our top priority even if it's not great financially? Are there any other ways to protect our family (especially our kids)?   Megan: Hello! I listen to your podcast everyday. You are inspiring and so knowledgeable. I really appreciate you sharing everything you've learned about health and wellness throughout the years. Can I ask your opinion about the best natural deodorant for women? I switched to a non-aluminum based deodorant and my armpits get a rash when I use it. (Little red bumps). Should I keep using it in hopes my skin will adjust? Thank you   Alicia: Hi! First of all, thank you for helping me change my life. I did a detox, food sensitvity, and CBO thus far. I've had hidradenitis suppurativa since I was 8 years old and chronic yeast infections forever. It seems to be the worst around my cycle. I stopped my birth control and doxycycline for HS to do this protocol and a hadn't had an outbreak until a week after completion. I have a yeast infection and five flares. An archived podcast mentioned the Gut & parasite lab. I need to know what I should run next to find my root cause because I don't want to do antibiotics again! I'm desperate to get rid of these flare ups after losing 60 lbs this last year I want to wear tanks and shorts so I'm hoping to figure something out before it gets too bad. Please help.   Meghan: Hey Dr C, just a question about Vitamin D and Vitamin A. What do you say to people who promote not to take any more 2000 IU of vitamin D because it interferes with the absorption and utilisation of Vitamin A? Thanks for all you do   Tara: Hello, I am 37 years old and just been diagnosed with hashimotos auto immune disorder and I am lost. I'm waiting to a food allergy test but I'm Canada everything takes forever. I already know I have a gluten allergy due to how it makes me feel and my doctor just put my on Synthroid and I'm taking iodine drops, vitamin D, magnesium and omega - all good quietly. Is there any other immediate steps you would recommend?   Thank you for tuning into today's Cabral HouseCall and be sure to check back tomorrow where we answer more of our community's questions!      - - - Show Notes and Resources: StephenCabral.com/2388 - - - Get a FREE Copy of Dr. Cabral's Book: The Rain Barrel Effect - - - Join the Community & Get Your Questions Answered: CabralSupportGroup.com - - - Dr. Cabral's Most Popular At-Home Lab Tests: > Complete Minerals & Metals Test (Test for mineral imbalances & heavy metal toxicity) - - - > Complete Candida, Metabolic & Vitamins Test (Test for 75 biomarkers including yeast & bacterial gut overgrowth, as well as vitamin levels) - - - > Complete Stress, Mood & Metabolism Test (Discover your complete thyroid, adrenal, hormone, vitamin D & insulin levels) - - - > Complete Food Sensitivity Test (Find out your hidden food sensitivities) - - - > Complete Omega-3 & Inflammation Test (Discover your levels of inflammation related to your omega-6 to omega-3 levels) - - - Get Your Question Answered On An Upcoming HouseCall: StephenCabral.com/askcabral - - - Would You Take 30 Seconds To Rate & Review The Cabral Concept? The best way to help me spread our mission of true natural health is to pass on the good word, and I read and appreciate every review!

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