Podcasts about life limiting

Show overview In this episode, the original wealth rebel and your host, Emma Wright, dives into the critical topic of *knowing your WHY* in business and life.  Emma explores how the pressures of financial targets and career growth can feel like pushing a boulder uphill when you're disconnected from your true purpose. She explains how this lack of alignment can lead to stress, burnout, and even disease. Through her insights as a wealth empowerment coach and healer, Emma shares how connecting to your deeper WHY can transform your energy, making success effortless and magnetic. Tune in for practical wisdom and a fresh perspective on creating wealth beyond money.  Show Highlights: The life-limiting impact of not knowing your WHY in business.  How stress and disconnection from purpose lead to burnout and ill health. The importance of creating from a place of deep inner purpose.  How authentic energy and alignment attract success without the "push."  The role of the STAR Collective in helping entrepreneurs reconnect with their WHY.   Show links You can't find me on social media, there are 4 simple ways to connect with me: 1: Join my Wealth Rebels Show WhatsApp group, yes in my phone, come straight in. Here only I can post, and share things with you, you won't miss anything I am doing. 2: Book a FREE 1–2-1 Wealth Empowerment Coaching call with me. 3: Take the WEALTH quiz and find out how rich or wealth you really are today. and join my mailing list, so you get personal emails from me. You can also send me an email at emma@starwealthstrategicplanners.com 4: Visit my website and find the ways of reaching out here. Follow and connect with me here: Follow me on instagram @thewealthrebel Join my free facebook group, Star Wealth Strategic Planners Connect with me on LINKED-IN here Subscribe to The Wealth Rebels Show on YouTube here for video content! You can also work with me if you are ready, here: Join the STAR Portal today. Join the STAR Collective today. Join the STAR Mastery school today. Donate to the Global Returns Project. Book a call with the team at FE Cashcalc to learn more about cashflow forecasting technology in your coaching or planning business today, free today!

We continue our conversation with Dr. Kevin McGee centering on the challenges faced by families and medical professionals when dealing with life-limiting diagnoses in children. Dr. McGee emphasizes the importance of clear, compassionate communication and respecting the unique decisions of each family, even when they differ from standard medical expectations. In the Able Speaks podcast episode titled "Navigating Life-Limiting Diagnoses for Children with Compassion and Wisdom," hosts Daniel and Kelly Crawford continue their conversation with Dr. Kevin McGee. The discussion centers on the challenges faced by families and medical professionals when dealing with life-limiting diagnoses in children. Dr. McGee emphasizes the importance of clear, compassionate communication and respecting the unique decisions of each family, even when they differ from standard medical expectations. If we can serve your family during this season, please email us support@abelspeaks.org or visit our website (www.abelspeaks.org).

This episode features Hannah Scott, (King's College London, Florence Nightingale Faculty of Nursing Midwifery and Palliative Care, Cicely Saunders Institute, London, UK)   What is already known about the topic? Person-centred outcome measures have been shown to improve the quality of care and patient outcomes in adult palliative care when successfully implemented into routine care. Several factors influence implementation in adult services, but they have not been identified in care for children with life-limiting and life-threatening conditions. The views of stakeholders are key to successful development, implementation and use of outcome measures in practice.   What this paper adds? Perceived benefits of using person-centred outcome measures include enhanced understanding of what matters to patients and families, improved communication and collaborative working and standardised data collection and reporting; perceived risks include negative impacts on care and measures not being used as intended. Potential barriers to implementation include acceptability and usability of the measure for children, burden and capacity of patients and families to complete the measure, privacy concerns, protecting family members and language barriers; potential facilitators include explaining the benefits of person-centred outcome measures and securing ‘buy-in', measures being implemented by known and trusted health and social care staff and the language in the measure being meaningful to children and families. Eight recommendations are presented to minimise risks and support successful implementation of child and family-centred outcome measures for children with life-limiting and life-threatening conditions.   Implications for practice, theory, or policy The benefits of person-centred outcome measures for care should be explained to children, families and professionals to facilitate buy in and successful implementation. Implementation strategies should be designed collaboratively with professionals to ensure implementation of person-centred outcome measures is feasible within current practice and does not impact negatively on care. Professionals introducing and administering the measure should be known and trusted by the child and family, and should discuss usage preference and information sharing to address any privacy concerns.     Full paper available from:     https://journals.sagepub.com/doi/full/10.1177/02692163241234797   If you would like to record a podcast about your published (or accepted) Palliative Medicine paper, please contact Dr Amara Nwosu:  a.nwosu@lancaster.ac.uk

This week on Family Policy Matters, host Traci DeVette Griggs welcomes Mary Szoch, Director of the Center for Human Dignity at the Family Research Council, to discuss a new report that explored perinatal hospice as an alternative for babies with a prenatal diagnosis of a life-limiting medical condition.    

Hola my friends!

There's this moment in every parent of a rare or medically complex kid's life, where you suddenly realize that the medical team you're working with doesn't know everything and might not know how to make the best medical decision for your child. It's terrifying... but it also feels a little bit like a rite of passage by now, and you can only hope that the way you find this out isn't through pain and trauma for your child.  In Alyssa's case, her daughter and her family weren't so lucky. In this episode, Alyssa Nutile, mom (and also producer for this podcast!), shares the traumatic story of Gemma's first few weeks of life, from a misdiagnosis, multiple unnecessary brain surgeries, and a lot of doctor conflict. This lost time and unneeded pain cuts especially deep, considering her daughter has a life-limiting prognosis.  Alyssa also shares how, despite everything, she's found a way to work with her daughter's medical team, albeit much more cautiously. And, at the end, she tells her side of the story for how she started working for Madeline and The Rare Life!   Finally, a big thanks to our sponsor for this episode, Functional Formularies!  Links:  Visit the Functional Formularies website for more tube-fed formula options!  Listen to Ep 19: The Story of Claire for another perspective on life-limiting diagnoses.  Listen to Ep 125: Traveling with Disabled Kids w/Alyssa Nutile.  Listen to Alyssa's podcast Caffeinated Caregivers.   Follow Alyssa on Instagram @caffeinated_caregivers!  Follow us on Instagram @the_rare_life!  Donate to the podcast or Contact me about sponsoring an episode.  Fill out our contact form to get a reminder about upcoming discussion meetings and the Skype link to join!  Access the transcript on the website here.   And if you love this podcast, please leave us a rating or review in your favorite podcast app!

Read the transcript here: https://www.weeklyaffirmationsblog.com/work-on-your-love-life-limiting-beliefs-with-these-beautiful-affirmations Use these self concept affirmations to get rid of the limiting beliefs you hold about yourself and love. --- Send in a voice message: https://podcasters.spotify.com/pod/show/affirmations912/message Support this podcast: https://podcasters.spotify.com/pod/show/affirmations912/supportSupport this podcast at — https://redcircle.com/i-am-affirmations-for-mental-health-wellbeing6701/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

Patients with life limiting conditions say New Zealand is lagging behind other OECD countries when it comes to funding new and breakthrough medicines. The group "My Life Matters" represents more than a million patients with conditions such as cancer and diabetes, and this morning got together in Auckland to protest for more medicine access equity. Rayssa Almeida has more.

This episode features Hannah May Scott (Florence Nightingale Faculty of Nursing Midwifery and Palliative Care, Cicely Saunders Institute, King's College London, London, UK).   What is already known about the topic? - Although spiritual concerns are recognised as a core component of palliative care for children, there is a paucity of primary data. - Self-report data from children is rare, and existing evidence is largely proxy data from parents or health and social care professionals and mainly focused on the religious aspect of spiritual care for cancer patients.   What this paper adds? - Specific spiritual concerns among children with a range of life-limiting and life-threatening conditions and their families (parents and siblings) included: living life to the fullest, meaning of life and leaving a legacy, uncertainty about the future, determination to survive, accepting or fighting the future and role of religion. - This work broadens understanding of the spiritual domain for these children beyond religious needs to existential and value-based spiritual concerns. - Recognition of the way in which children conceptualise spirituality and being able to identify their spiritual concerns is essential for child- and family-centred holistic palliative and end-of-life care.   Implications for practice, theory, or policy - Professionals can optimise children and family's wellbeing through identification of the things that provide meaning for them, and working together to set goals and actions towards achieving them. - Such concerns must be assessed beyond religious considerations. - Simple tools and training to support professional may be useful in implementing this.  Full paper available from:    https://journals.sagepub.com/doi/full/10.1177/02692163231165101  If you would like to record a podcast about your published (or accepted) Palliative Medicine paper, please contact Dr Amara Nwosu: a.nwosu@lancaster.ac.uk

https://youtu.be/8YYPlPsKBBM At the 44th annual conference for the Association for Death Education and Counseling (ADEC) Jenna Rice her thoughts on supporting families .

Listen in to hear an honest and very practical, tangibly helpful conversation about navigating many different aspects of a life-limiting diagnosis and life after loss with KC Tregoning. During our time together KC shares about her son Alan and what it was like to receive a life-limiting diagnosis for him – how she navigated the medical system, what she learned about how to best naviagate a very rare diagnosis, questions to ask your team and even how she kept all the information from the plethora of appointments organized in a way that made it all just a little easier. We talk about finding purpose after experiencing loss and what it looked like for her to build community. KC shares what her faith looked like in this season and many of the ways God showed up to remind her of His great love for her even amidst the unthinkable. Lastly, we spend some time talking about how to love a grieving mom and dad.   I am so grateful for KC's wisdom and very practical advice throughout our time together – I am sure that no matter your story, this episode is going to bless you.     THIS EPISODE IS IN LOVING MEMORY OF TRIPPER CHARLES.  Tripper was born on March 17, 2018. A message from the sponsor, Citizens Church: “We love you, Tripper! We are eagerly waiting with Tripper's family for Jesus to return, for all that is wrong to be made right, for death to die, and for the greatest reunion we will ever know. One day closer. Love, your Citizens Church family” A special thank you to Citizens Church for sponsoring this episode.  We remember Tripper Charles with you.   If you love this podcast and are interested in sponsoring an episode in honor of your baby, head to themorning.com/sponsor for all the details.    FREE DEVOTIONAL A free 7 day devotional for those who have eperienced the loss of a baby. Download here: www.themorning.com/hope   FREE ONLINE SUPPORT COMMUNITYA place away from social media where you can find support and care from women who are just like you. Women navigating the day to day ups and downs of grief. A place where you can feel not alone in this. Come join us: themorning.com/community   FREE GRIEF RESOURCE BUNDLEOur best and most helpful resources for navigating grief and life after loss all in one place. Plus a list of our favorite books for children about grief and loss. Download Here.   FREE GUIDE: IF YOU LOVE A GRIEVING MOMAnd if you love a grieving mom, we have something for you too, a free guide with simple tips for how to love a grieving friend: themorning.com/friendsandfamily.   RATE, REVIEW &  FOLLOW ON APPLE PODCASTSIf you love The Joyful Mourning Podcast, please consider rating and reviewing the show! This helps moms who are grieving to find us a little easier and get that support they need. Click here, scroll to the bottom, tap to rate with five stars, and select “Write a Review.” Then be sure to let me know how this episode helped you. SHOW NOTESwww.themorning.com/blog/episode198

"When God doesn't give a miracle..." Monica Harris joins me for this episode to share her motherhood journey and her experience receiving a life-limiting diagnosis for her son Vance as well as the news that she and her husband were carriers for a genetic condition that could result in a similar diagnosis in future children. At the time of our recording Monica was 37 weeks pregnant with a daughter who was also given a difficult diagnosis – prayerfully not a diagnosis that would limit life but difficult and complex nonetheless. Knowing this makes my time with Monica and her words that much more powerful – when she talks about what it looked like to pray for a miracle and for God to not give that miracle– about this she says: “He's good God, but He's not always going to say yes.” and we talked about her pregnancy right now, she said this: “I like to be in control, but this time I have no control. Just praying and believing that God will take us through whatever comes.”  We spend some time talking about: what it was like to receive that life-limiting diagnosis for her son Vance how to navigate when the plan you have for your family doesn't turn out the way you had ever imagined navigating a pregnancy after loss navigating the medical aspect to a life-limiting diagnosis and high risk pregnancy after loss friendships after loss what she wishes others knew about grief and how to help a mom who is grieving.  This is a beautifully tender and honest interview with a mom who is still in a season of waiting, of anticipating, of navigating the unknown but her faith will encourage you – I know it encouraged me. FREE DEVOTIONAL A free 7 day devotional for those who have eperienced the loss of a baby. Download here: www.themorning.com/hope FREE RESOURCES FOR PREGNANCY AFTER LOSS: Free Pregnancy After Loss Community – it's a private group and conversation within our main community where you can feel the freedom to have honest conversations about the unique journey that is pregnancy after loss. themorning.com/pal Free Download: 40 Verses for 40 Weeks - this download includes 1 verse to meditate on, pray, or memorize for every week of your pregnancy. themorning.com/pal All of our best and most helpful blog articles and podcast episodes about growing your family after loss into one place. themorning.com/pal THIS EPISODE IS IN MEMORY OF  MALACHI GRECO.  This episode is sponsored in honor of Malachi Greco.  A message from ​​Adriana Gruntz: “God used and continues to use Malachi to break our hearts to show us His tender mercies. God is using Malachi to teach me and the whole family how to intensionally be there for each other and for the people around us. Malachi is our eternal gift and though the pain will never leave, God will teach us a new kind of Joy. Malachi we will forever carry you in our minds and hearts. We love you so much. I also wanted to hug, through this message, my sister Paoli and her wonderful husband Todd. We love you so much!” A special thank you to Adriana for sponsoring this episode. We celebrate Malachi and we remember him with you. We remember Malachi with you. If you love this podcast and are interested in sponsoring an episode in honor of your baby, head to themorning.com/sponsor for all the details.  FREE ONLINE SUPPORT COMMUNITYA place away from social media where you can find support and care from women who are just like you. Women navigating the day to day ups and downs of grief. A place where you can feel not alone in this. Come join us: themorning.com/community   FREE GRIEF RESOURCE BUNDLEOur best and most helpful resources for navigating grief and life after loss all in one place. Plus a list of our favorite books for children about grief and loss. Download Here.   FREE GUIDE: IF YOU LOVE A GRIEVING MOMAnd if you love a grieving mom, we have something for you too, a free guide with simple tips for how to love a grieving friend: themorning.com/friendsandfamily.   RATE, REVIEW &  FOLLOW ON APPLE PODCASTSIf you love The Joyful Mourning Podcast, please consider rating and reviewing the show! This helps moms who are grieving to find us a little easier and get that support they need. Click here, scroll to the bottom, tap to rate with five stars, and select “Write a Review.” Then be sure to let me know how this episode helped you. SHOW NOTESwww.themorning.com/blog/episode197

Nick and Sabrina Kohlberg were told at their 20-week anatomy scan that their daughter Collins had anencephaly. This condition is not compatible with life. They were given a couple weeks to decide whether to terminate the pregnancy or continue with the expectation that she could pass at any time. They were told if she made it to delivery, she could live a few minutes or a few hours. Sabrina said, " I could not make the decision to terminate her life, so we put it in God's hands, and we hoped to get some time with our daughter alive. Nick & Sabrina Shared about: ·      The next 4 months of pregnancy ·      Strangers asked if it was a boy or girl? ·      Co-workers that would just sit and cry with Sabrina. ·      The high-risk doctors support. ·      The amazing 11 hours that Collins lived and the 2 days they were able to spend with her. ·      Creating memories, mementos and ways to honor Collins life. “Don't worry about making others uncomfortable when talking about your child. This is your life, and your child deserves to be talked about. Don't be scared to mention your baby.” ~~ Nick “I learned that grief could look very different even with spouses. We both lost Collins and the path we went through was very different.” ~~ Sabrina Connect with Teresa: EMAIL teresa.womenconnect2019@gmail.com or teresa.livingaftergrief.com Facebook ⁠https://www.facebook.com/.womenconnectsupport/⁠. and ⁠https://www.facebook.com/.livingaftergrief/⁠. Instagram: @womenconnectandsupport or @livingaftergrief Website: ⁠www.livingaftergrief.com⁠ click and schedule a time to talk: ⁠https://calendly.com/teresa-reiniger/podcast-discovery-call

Crystal Webster is the (co)founder of Sharing Solace, author of ‘Confessions of a Griever', creator of the ‘Feel Your &*@#% Feels' Experience, speaker, mentor, entrepreneur, and most importantly she is Madelyn Elizabeth Webster's mama. Crystal and Kyle were given devastating news after a 32 week ultrasound that their baby was not going to live. They were given 3 choices: Go across state lines and have a very late term termination, be induced then or continue the pregnancy as long as possible and hope she would be born alive. During the next 19 days Crystal said the social worker was very helpful and the family "circled the wagons. When Madelyn died in Crystal's arms just hours after she was born, she wanted to die too. Crystal shared that it took her years to learn to live again – mostly because she realized her Madelyn wouldn't want her to live the rest of her life waiting to die. During that time they learned that Madelyn's condition was genetic and they did not want to pass it on to other children so they attempted to have another child through IVF and embryo testing with no success. She said we went through several lifetimes of emotions and several lifetimes of grief in those 4 or 5 years. We then needed to step back and unpack to see where we were because we hadn't done that after Madelyn's death. Sharing Solace (SharingSolace.com) was founded from that love and hope: to help grievers grieve and lovers love their griever through technology-elevated, pass-along-able gifts wrapped in a meaningful community of support and strength - so you can always ‘Remember. You're not alone.' We will talk about her business on a future episode. Words of encouragement from Crystal: Crystal said, one of the platitudes that I really dislike to hear is 'Everything happens for a reason. I like to flip this on its head and say everything happens and you chose to find the reason. Connect with Crystal: https://www.facebook.com/SharingSolace Connect with Teresa: EMAIL: teresa.livingaftergrief.com Facebook https://www.facebook.com/.livingaftergrief/. Instagram: @livingaftergrief Website: www.livingaftergrief.com click and schedule a free complementary time to talk: https://calendly.com/teresa-reiniger/podcast-discovery-call

In this episode I have the joy of interviewing Essence Reid-Oxley about her motherhood journey. During our time together Essence shares with me about her son Micah and what it was like to learn that he had Sickle Cell Anemia and then was later given a life limiting diagnosis called "Fetal Akinesia”. We talk about what it was like to receive that diagnosis, what options she was given and what words of wisdom she would give to another mom who has been given a life limiting diagnosis for her baby. Essence shares how she created a birth plan and what her hopes were for when her son Micah was born. Then we spend time talking about what it was like to parent her living son throughout her pregnancy and then after losing Micah. We talk about the kinds of questions that a 2-3 year old asks when trying to process the loss of a baby and how those questions change as they grow older. We talk about what it was like for Essence to walk Tobias, her living son, through that season while her heart was also breaking. The books she read to him, the way she talked about what was happening and what had happened as well as the ways they include Micah in the life of their family now.  Essence experienced another devastating loss just earlier this year, not even a year after losing her son Micah and we spend some time talking about what that was like for her, how she is pursuing healing and what her relationship with God looked like amidst all the loss and grief. This conversation is honest and incredibly hopeful – I know it will bless you.   QUESTIONS WE DISCUSS IN NO.172 What surprised you most about loss and the grief journey?  What would you say to a woman who has just received a life-limiting diagnosis? What do you wish someone would have said to you? Let's talk about parenting amidst such devastating news. How old was your son Tobias at the time of the diagnosis given for Micah?  What was it like to walk him through that season while your heart was also breaking? How did you talk to him? How did you explain what was happening?   What other challenges did you face in parenting Tobias after you lost Micah? How did you navigate those challenges? How do you help Tobias grieve and cope?  Are there any resources that have been helpful to you in parenting after loss?  What has it looked like for you to include Micah in the life of your family now? You suffered another loss after losing your son Micah. What was it like to experience another loss? What has healing looked like for you? Spiritually, emotionally and mentally? What did/has your relationship with God look like in this season?  What has it practically looked like to maintain a healthy relationship with God in this season?   FREE GRIEF GUIDE Our best and most helpful resources for navigating grief and life after loss all in one place. Download Here.   JOIN OUR FREE ONLINE COMMUNITYwww.themorning.com/community   SHOW NOTESwww.themorning.com/blog/episode172   RATE, REVIEW &  FOLLOW ON APPLE PODCASTSIf you love The Joyful Mourning Podcast, please consider rating and reviewing the show! This helps moms who are grieving to find us a little easier and get that support they need. Click here, scroll to the bottom, tap to rate with five stars, and select “Write a Review.” Then be sure to let me know how this episode helped you.

Multiple Sclerosis News Today's multimedia associate, Price Wooldridge, discusses how MS can increase the risk of potentially life-limiting problems like pneumonia, as a team of scientists in the U.S. and China conducted an study to identify the link between MS and mortality risk. He also reads “MS News That Caught My Eye Last Week: Evusheld, Immunotherapy, Blood Test, Aubagio”, from Ed Tobias' column “The MS Wire.” =================================== Are you interested in learning more about multiple sclerosis? If so, please visit: https://multiplesclerosisnewstoday.com/ ===================================== To join in on conversations regarding multiple sclerosis, please visit: https://multiplesclerosisnewstoday.com/forums/

In this episode, Yvette Raphael provides her perspectives and advice as an individual living with HIV in South Africa for more than 20 years. She shares her experiences and ideas for how to improve processes related to HIV diagnosis, care linkage, and treatment.Presenter:Yvette RaphaelContent based on an online CME program supported by an independent educational grant from Gilead Sciences, Inc.Link to full program: https://bit.ly/3tmgozy

In this episode, we explore some of the ways that a health care team can support siblings of children with serious illness. Gerard Clancy, MD Senior Associate Dean for External Affairs Professor of Psychiatry and Emergency Medicine University of Iowa Carver College of Medicine Aly Noble, MS Certified Child Life Specialist University of Iowa Stead Family Children's Hospital Abimbola Olayinka, MD Clinical Assistant Professor of Pediatrics-General Pediatrics and Adolescent Medicine University of Iowa Carver College of Medicine Financial Disclosures:  Dr. Gerard Clancy, his guests and the members of the planning committee for Rounding@IOWA have no relevant financial relationships to disclose. CME Credit Available:  https://uiowa.cloud-cme.com/course/courseoverview?P=0&EID=48287  Accreditation: The University of Iowa Roy J. and Lucille A. Carver College of Medicine is accredited by the Accreditation Council for Continuing Medical Education (ACCME) to provide continuing medical education for physicians. CME Credit Designation: The University of Iowa Roy J. and Lucille A. Carver College of Medicine designates this enduring material for a maximum of 1.00 AMA PRA Category 1 CreditTM. Physicians should claim only the credit commensurate with the extent of their participation in the activity. Nurses: Effective March 18, 2020, Iowa nurses may use participation in ACCME-accredited education toward their CE requirement for licensure. A certificate of participation will be available after successful completion of the course. (Nurses from other states should confirm with their licensing boards that this activity meets their state's licensing requirements.) Other Health Care Providers: A certificate of completion will be available after successful completion of the course. (It is the responsibility of licensees to determine if this continuing education activity meets the requirements of their professional licensure board.) Date Recorded: 5/27/2022

Bumbleance is a free transport service provided to children with critical or life limiting conditions and earlier on todays edition of the "Morning Mix" we chatted to Anna Early about an event taking place on Wexfords Quayfront tomorrow

Char Harryman faced a life-limiting diagnosis with extraordinary courage and faith, and she used the time she was given to be a gift to others. On Easter Sunday back in 1995, Char suffered a grand mal seizure. And then another. And another. This eventually led to numerous tests where doctors discovered a golf ball-sized malignant tumour on her brain.  Doctors gave Char two years to live, but God had other plans. She lived 24 more years and didn't waste any time touching the lives of thousands before she passed away in 2019. Today on Connections, Steve  shares Char's amazing story and how she impacted lives around the world. See omnystudio.com/listener for privacy information.

A rare and life-limiting mitochondrial disease affects just three people in Ireland.  Two of them are Liz Dickson's children.  Lis spoke to Ciar about her children Tommy and Grace. Listen and subscribe to Newstalk Breakfast on Apple Podcasts or Spotify.     Download, listen and subscribe on the Newstalk App.    You can also listen to Newstalk live on newstalk.com or on Alexa, by adding the Newstalk skill and asking: 'Alexa, play Newstalk'.

A rare and life-limiting mitochondrial disease affects just three people in Ireland.  Two of them are Liz Dickson's children.  Lis spoke to Ciar about her children Tommy and Grace. Listen and subscribe to Newstalk Breakfast on Apple Podcasts or Spotify.     Download, listen and subscribe on the Newstalk App.    You can also listen to Newstalk live on newstalk.com or on Alexa, by adding the Newstalk skill and asking: 'Alexa, play Newstalk'.

A Special Bonus Episode. Listen to Hailey Maddox read her letter To the Mom Waiting to Meet Her Baby with a Life Limiting Diagnosis We pray these words would bring you hope and remind you that you are loved and not alone.   To read Hailey's letter: www.themorning.com/blog/to-the-mom-waiting-to-meet-her-baby-with-a-life-limiting-diagnosis For more resources to provide hope and support, especially during Mother's Day, head to themorning.com/mothersday  Join Our Free Community: www.themorning.com/community

Nick and Sabrina Kohlberg were told at their 20-week anatomy scan that their daughter Collins had anencephaly. This condition is not compatible with life. They were given a couple weeks to decide whether to terminate the pregnancy or continue with the expectation that she could pass at any time. They were told if she made it to delivery, she could live a few minutes or a few hours. Sabrina said, " I could not make the decision to terminate her life, so we put it in God's hands, and we hoped to get some time with our daughter alive. During the episode they shared about the next 4 months of pregnancy. Times when complete strangers asked if it was a boy or girl? Co-workers that would just sit and cry with Sabrina. The support from the high-risk doctor that Sabrina said was amazing as well as all the people he connected them too. The guidance and support for them through the rest of the pregnancy, delivery and funeral services was so helpful. Nick and Sabrina talked about the amazing 11 hours that Collins lived and the 2 days they were able to spend with her. They shared about creating memories, mementos and ways they are honoring Collins life. Advice and Encouragement from Nick and Sabrina: Nick: First, talk about the child you lost. Don't worry about making others uncomfortable when talking about your child. This is your life, and your child deserves to be talked about. Don't be scared to mention your baby. Second, yes it sucks. Just hold on, it might take a year, it might take 6 months or multiple years. There can be good that comes out of a bad situation. Honor your baby, which is good and keep hope alive. The loss community is not one that we would choose to be part of but it is a community that takes care of each other. Sabrina: Facebook support groups can be amazing, search for a group specific to your situation. I will caution you though that it can be overwhelming, and you may need to step back. I learned that grief could look very different even with spouses. We both lost Collins and the path we went through was very different. For women the trauma is different for you because your body is going through a lot of change. Connect with Teresa: EMAIL teresa.womenconnect2019@gmail.com or teresa.livingaftergrief.com Facebook https://www.facebook.com/.womenconnectsupport/. and https://www.facebook.com/.livingaftergrief/. Instagram: @womenconnectandsupport or @livingaftergrief Website: www.livingaftergrief.com click and schedule a time to talk: https://calendly.com/teresa-reiniger/podcast-discovery-call

This is part 1 of a 2 part interview with Megan Gamboa. In this week's episode Megan is sharing the story of her son Levi and the life-limiting diagnosis of trisomy 13 she received for him and what it looked like for her to make the decision to carry him to term and how she advocated for his life with her medical time. Megan is a physical therapist and during our time together she shares her unique experience of what it looks like to navigate the medical system after having received a life-limiting diagnosis. Megan shares very practical advice about how she did this that I am sure will encourage you and give you tangible steps to take that feel manageable and doable if this is your story. In this part 1 of Megan's 2 part interview we also talk about her pregnancy after loss journey as well. If you are in that season I know that Megan's story will remind you that you aren't alone in how difficult pregnancy after loss is to navigate and I'm sure you will find a lot of hope in her honesty.    Next week in part 2 Megan will share about what returning to work looked like for her, the same hospital where her son both lived and died is also her workplace – and her wisdom and honesty about this is going to be so helpful for you. We will also discuss marriage, faith and mental/emotional health after loss. One of my favorite questions that Megan answered was how her grief has changed over the last 3 years – I can't wait for you to hear that next week.    This episode is tender and honest but also tangibly and practical helpful. I hope it reminds you that it is ok and gives you the courage to advocate for yourself and for your baby and to make decisions that are best for you and your family and your baby. FREE RESOURCE BUNDLEOver the past 5 years we have helped thousands of women navigate life after the loss of a baby and we pulled our best and most helpful resources all into one easy to access resource. There is a separate bundle for miscarriage, infant loss and life-limiting diagnosis so the resources are very specific, tailored to you and your grief journey. To get your free resource bundle head to themorning.com/resourcebundle SHOW NOTESwww.themorning.com/blog/episode146 FREE ONLINE COMMUNITY www.themorning.com/community RATE, REVIEW &  FOLLOW ON APPLE PODCASTSIf you love The Joyful Mourning Podcast, please consider rating and reviewing the show! This helps moms who are grieving to find us a little easier and get that support they need. Click here, scroll to the bottom, tap to rate with five stars, and select “Write a Review.” Then be sure to let me know how this episode helped you.

Listen in as I spend time with Carolyn Keller as she shares with me about her daughter Bethany who had trisomy 13. This episode is full of so much wisdom -- Caroyn shares about her pregnancy journey with Bethany as well as her life in the NICU. She talks about what it was like to receive a life-limiting diagnosis and how she navigated that news with her husband and her 3 living children. And then we talk about what it was like to say goodbye and navigate life after loss. Again, we talk about marriage and parenting and what her faith looked like during that time. Carolyn gives so much wisdom in this episode as well as a ton of practical advice including her favorite resources and books for navigating a life-limiting diagnosis and life after loss and how to walk living children through both of those. Carolyn said something towards the end of our time together, something that only another grieving mom would be able to hear and understand, she said: “I look forward to the sadness because through the sadness, I can have joy remembering my daughter.” Such a beautiful and honest and accurate sentiment. Make sure to listen all the way to the end when Carolyn shares a few more words that I promise will offer you freedom and hope today in your grief journey.  I am so thankful to Carolyn and her willingness to share her story and wisdom with us -- I pray it is a blessing to you.    FREE RESOURCE FOR LIFE AFTER BABY LOSS Over the past 5 years we have helped thousands of women navigate life after the loss of a baby and we pulled our best and most helpful resources all into one easy to access resource. There is a separate bundle for miscarriage, infant loss and life-limiting diagnosis so the resources are very specific, tailored to you and your grief journey. To get your free resource bundle head to themorning.com/resourcebundle CHRISTMAS BIBLE STUDY GUIDEwww.themorning.com/christmas RESOURCE FOR HOW TO LOVE A GRIEVING MOM www.themorning.com/friendsandfamily SHOW NOTESwww.themorning.com/blog/episode137 FREE ONLINE COMMUNITY www.themorning.com/community

Listen in as I spend time with Kristyn Szala and ask her all kinds of questions about her motherhood journey. Kristyn has experienced infertility, journeyed through ivf, experienced a miscarriage with one of her twins and then would go on to experience a life-limiting diagnosis for her son Asher. During our time together Kristyn talks honestly about her experience with IVF and what it was like to lose a twin in the first trimester of pregnancy -- she shares what it was like to grieve that loss, the unique challenges it held and what advice she would give to a woman in that situation. We go on to talk about what it was like to receive a life-limiting diagnosis for her son Asher -- what she wishes she had known, what she learned and what she would have done differently. Kristyn said that immediately after hearing the news she canceled everything, her maternity photos, her baby shower, everything. But then after thinking about it for a few days she decided this baby and this pregnancy was worth celebrating. She said she asked herself: “how do I want this pregnancy to be? I want it to be full of joy.” This part of our conversation was really beautiful and I absolutely love the idea her friend did for her in the way of a Baby Blessing -- you'll have to listen to hear exactly what I'm talking about. We talked about a few specific tactics that were helpful to her in navigating life after loss as well as a major career change she made a few years following her son Asher's death. The last thing we talk about very candidly and tenderly is the reality that Kristyn is unable to have more children and what it's like to navigate losing your youngest child -- if that is your reality too, I am sure that what Kristyn has to say about this will remind you that you are not alone.   FREE RESOURCE FOR LIFE AFTER BABY LOSS Over the past 5 years we have helped thousands of women navigate life after the loss of a baby and we pulled our best and most helpful resources all into one easy to access resource. There is a separate bundle for miscarriage, infant loss and life-limiting diagnosis so the resources are very specific, tailored to you and your grief journey. To get your free resource bundle head to themorning.com/resourcebundle SHOW NOTESwww.themorning.com/blog/episode134 FREE ONLINE COMMUNITY www.themorning.com/community  

Wendy Tamis Robbins' anxiety, obsessive-compulsive, and panic disorders started when she was a young child growing up in a volatile household. Anxiety controlled her life well into adulthood, to the point of agoraphobia. Though she dabbled in treatment from time to time, it took many years and an unsuccessful marriage before she finally took hold of her mental health and, through introspection, meditation, re-parenting and self-administered exposure therapy, escaped from her self-inflicted prison.Not only are we living in an era of particularly high anxiety, but according to the Anxiety and Depression Association of America, anxiety-related disorders are the most common mental illness in the United States, affecting more than 40 million adults aged 18 and older. And anxiety disorders also affect more than 25 percent of teenagers ages 13 to 18.Wendy's story offers hope and inspiration to individuals trapped by anxiety disorders.

This week Mark Ostrom, founder and executive director of Joy Collaborative, tells me about his work bringing people together to create enriching spaces for youth - and how you can apply those methods and principles to your own home. In this episode, you will discover……. - That designing with accessibility in mind is good for everyone. - What kind of accommodations can make the most difference to someone with life limiting conditions. - How to make creative and stimulating spaces on a budget. About our guest With nearly three decades in the architecture and design industry Mark took the bold step of combining his love for design and his passion for helping others into Joy Collaborative. Founded in 2019 on a shoestring budget and a career filled with colleagues, Mark officially launched Joy Collaborative. Joy Collaborative is a group of impassioned doers and volunteers who help create spaces for kids with life-limiting conditions. The first Joy Collaborative space “Brave Bear” was created for Kodiak a Twin Cities child with a rare genetic disorder. The spaces are created through partnerships with the architecture & interior design community and financial donations from the corporate community. The Twin Cities 501©(3) expects to create up to 10 projects in 2021. The organization is enriched by partnerships with Lifetime Fitness, the Minnesota United, Twin Cities Orthopedics, and other generous organizations contributing to the well-being and advancement of youth. Learn more about Mark Ostrom Website: https://joycollaborative.org/ (Joy Collaborative) Instagram: https://www.instagram.com/joycollaborative_/?hl=en (Joy Collaborative) LinkedIn: https://www.linkedin.com/in/mark-ostrom-17994b9/ (Mark Ostrom) _____________________________________ Thanks for listening! Thanks so much for being with us this week.  Please see the episode enhancement for this and other episodes athttps://www.talkinghomerenovations.com/ ( talkinghomerenovations.com) Do you have feedback you would like to share?  Would you like to be a guest on the podcast?  Email me at thehousemaven@talkinghomerenovations.com If you enjoyed this episode, please share it with your friends Don't forget to subscribe to the show and get automatic updates every Wednesday morning with the latest episode of Talking Home Renovations with the House Maven.   Clickhttp://eepurl.com/gFJLlT ( here) to get the episode enhancements sent directly to your inbox every week. Reviews and ratings help my show gain traction and credibility.  Please leave a review here-https://podcasts.apple.com/us/podcast/talking-home-renovations-with-the-house-maven/id1481716218 ( https://podcasts.apple.com/us/podcast/talking-home-renovations-with-the-house-maven/id1481716218) Visithttps://my.captivate.fm/www.Talkinghomerenovations.com ( Talkinghomerenovations.com) for episode enhancements, containing photos and more information about the episodes as well as transcripts.  There you can leave a voice message through speak pipe that could be included in a future episode. Follow me on instagram: @talkinghomerenovations Join me on Facebook: Talking Home Renovations Follow me on Twitter (help make that a thing): @talkinghomereno Join me on TikTok: @The House Maven Talking Home Renovations with the House Maven is part of Gabl Media, the largest, most engaged AEC network on the planet.  Visit http://www.gablmedia.com (www.Gablmedia.com) for great content.  Sign up for the weekly newsletter- I send out the episode enhancements every Wednesday morning, http://eepurl.com/gFJLlT (  sign up here) Thanks to Ray Bernoff, the editor of the show.http://www.raybernoff.com/ ( www.RayBernoff.com) Music at the beginning and end of the episode is The House Maven's Jig, written and performed by Neil Pearlman, https://neilpearlman.com/ (www.neilpearlman.com) Show Cover Art by Sam Whitehttp://www.samowhite.com/ ( www.samowhite.com) This podcast... Support this podcast

This week I invited my friend Lindsey Dennis back to the podcast to talk about her spiritual journey and walk with God amidst anticipatory grief and the grief that followed the loss of her two daughters, Sophie and Dassah -- both from life-limiting diagnoses. Lindsey shares honestly as she answers questions like: Did you ever get angry with God? Did you doubt His goodness? Did you doubt your faith completely? I also asked Lindsey how she wrestled through the idea that God was powerful enough to heal her babies… or was He? Or did He just choose not to? And if He chose not to, is He still good? We also discuss the question: did I do something wrong to deserve this loss? A question that many of us have probably thought about or asked at one point or another in our grief journey. We end our time talking about heaven and what the Bible has to say for us as grieving moms and the hope we have to see our babies again one day.    Whether you have been following God for a long time, if you are new to the christian faith, or if you are searching or angry or confused or questioning everything you thought you believed -- you are in good company, friend. You are not alone and I think this episode will encourage you today right where you are.    FREE DEVOTIONAL Download a free 7 day devotional written specifically for women who have experienced the loss of a baby. 7 days of bible passages with a short devotion and prayer. www.themorning.com/hope   SHOW NOTES www.themorning.com/blog/episode130   FREE PRIVATE COMMUNITY www.themorning.com/community  

Kelly Griffin joins me on the podcast to share the story of her son Reeves who was given a life-limiting diagnosis of trisomy 18. Kelly shares with me what it was like receiving a life-limiting diagnosis and what advice and wisdom she would give to a mom who has received a similar diagnosis. We cover a lot of topics about life after loss and even life amidst anticipatory grief in this episode as well.    Kelly shares her experience and wisdom about parenting living children amidst a life-limiting diagnosis and after the loss of a baby -- Kelly shares how she explained to them her son's diagnosis, what it was like to walk with them as they grieved the loss of a sibling, why she chose to invite them into the grief in the ways she did. Her wisdom on this is incredibly helpful and very honest.    We also talk extensively about marriage amidst anticipatory grief and after the loss of a baby -- the wisdom she shares about this is insightful and challenging and wonderfully practical and of course full of so much hope.    We also spend some time talking about a topic that we haven't talked about very much on this podcast and something that is still very tender for Kelly and that is what if you do not go on to have a living baby after you have lost a baby -- Kelly talks honestly about what that has looked like for her and she addresses how our culture puts a lot of hope in the idea of a healthy living child after the loss of a baby, a rainbow baby; emphasis put on how a new baby will be our redemption, our healing --  she talks directly to that and to the woman who is experiencing that reality. The hope that Kelly shares here is invaluable and even if you go on to have living children after the loss of a baby, this hope, this truth is for you too.   FREE GIFT: ULTIMATE RESOURCE BUNDLE Before we jump into the episode I wanted to tell you about something really amazing that we have been working on for months and months. We have pulled all of our best and most helpful resources together in one place so that you can easily and quickly access the things you need when you need them. The bundle includes: Links to our favorite episodes Understanding & Processing Your Grief Preparing for Labor & Delivery Memory Making checklist (for after your baby is born) Planning a Funeral or Memorial Service Resources for Marriage after Loss Resources for Faith after Loss Resources for Remembering & Honoring your Baby All of our best and most helpful resources in one place. And the best part is, we created one for each type of loss so the resources are specific to your loss journey and it is FREE. This 25+ page Resource Bundle is totally free and you can download it today. Download the Ultimate Resource Bundle that is specific (there is one for Pregnancy Loss, Infant Loss & Life Limiting Diagnosis) at themorning.com/resourcebundle.   SHOW NOTES www.themorning.com/blog/episode128

On Health Suites, Claressa Monteirospeaks withDr Cynthia Goh, Chairman, Asia Pacific Hospice Palliative Care Network (APHPCN) and lead for the Lien Collaborative for Palliative Care, on the importance of establishing end-of-life care services, to find out what is being done and what more can be done, especially in low-income markets in South and Southeast Asia. See omnystudio.com/listener for privacy information.

Meg Walker joins me to talk about navigating milestones and important dates after the loss of a baby due to a life-limiting diagnosis. She shares with us what those milestone and important or difficult dates are for her. Specifically we spend some time talking about her son's diagnosis day and what that looks like for her every year -- as Meg says “that's the before and after for me -- the day everything changed.” Meg talks about what has surprised her about navigating those milestone days, how she plans for those days and how she cares for herself amidst the more difficult seasons in her calendar year and practically what those days look like for her. How she celebrates her son's birthday, why she doesn't sing happy birthday and how she grieves on the anniversary of his diagnosis.  She also shares helpful wisdom about knowing when to include others and inviting them into these days.  And as you heard at the beginning of this episode, my favorite part of this episode is when Meg reminded all of that no matter what we as grieving moms do, whether we plan elaborate events or cry in our bed or do nothing out of the ordinary at all on those milestone or important days, what we do or don't do doesn't take away from how important and meaningful our babies are.  This conversation is honest and candid and very tender to both of us as you will hear -- we both share what we have learned over the past few years and how our view of milestone days have changed, mistakes we have made, false pressures we have put on ourselves, what still feels hard but also the beautiful moments we have experienced.    FREE GUIDE Last week, in episode 125, Erica McAfee talked about how she writes her son a letter on his birthday as a tangible way to mother him and celebrate him and also to grieve on that day. This was such practically helpful and tangible advice that I wanted you to be able to incorporate it into your milestones and important dates too. I created a writing guide for you that you can download and use on days that feel particularly important -- this is not just for birthdays but for any date where you want to intentionally spend time reflecting on your baby or processing your grief or simply to spend time tangibly mothering your baby. Download the guide here: www.themorning.com/letter   SHOW NOTES www.themorning.com/blog/episode126 JOIN THE PRIVATE COMMUNITY www.themorning.com/community    

Join us for a conversation with Amy Balentine about her story of receiving a life-limiting diagnosis for her son, Simon. Amy shares her journey of walking through Simon's pregnancy and the seven days he lived on earth before going to Heaven.After grieving Simon's death, Amy and her husband also lost three other babies early in pregnancy. Amy discusses with Ashley how this shaped her faith journey and why she has chosen to look for blessings in the middle of her suffering. She encourages grieving moms to lean on Jesus in the darkness of grief.In this episode, we discussed: Navigating a life-limiting diagnosis in pregnancy  How to handle people who encourage you to "end the suffering" Choosing life and letting the Lord decide when Simon would pass away Why it's important to trust God to lead and carry you through this difficult season The difference between miracles and tragedies Finding blessings in the midst of suffering How to surrender control and choose our reactions to unwanted circumstances Faith statements and how we can teach our heart to feel what our brain knows to be true: "God is good even when my baby dies." How to handle lonely, dark nights filled with worry when carrying a baby who is expected to pass away  Celebrating your baby's life even when you're sad Ways to connect with and cherish your baby in your pregnancy Amy's ministry You Made Me Mom and the importance of hospitality in pregnancy loss support groups Guest Info | Amy BalentineAmy is the founder of You Made Me Mom, a 501c3 nonprofit organization that supports grieving mothers.www.youmadememom.comEPISODE SHOW NOTES, FULL TRANSCRIPT, & FREE PDF HOPE GUIDE:www.bridgetscradles.com/post/episode4CRADLED IN HOPE PODCAST WEBSITE:Sign up here to receive email updates and hope-filled resourceswww.bridgetscradles.com/podcastCRADLED IN HOPE FACEBOOK COMMUNITY FOR GRIEVING MOMS:www.facebook.com/groups/cradledinhopeFOLLOW BRIDGET'S CRADLESwww.facebook.com/bridgetscradleswww.instagram.com/bridgetscradleswww.pinterest.com/bridgetscradlesCONNECT WITH THE HOST | ASHLEY OPLIGERwww.ashleyopliger.comwww.facebook.com/ashleyopligerwww.instagram.com/ashleyopliger#cradledinhope #cradledinhopepodcast #bridgetscradles ★ Support this podcast ★

What would you do if you received the news that your child or family member has a life limiting condition?  This is a reality for many families. On our Guest Podcast series, Carolyn Kyne, a paediatric nurse joins us. She explores her experience of working with families with children with life-limiting conditions. She tells of a day in her life, the potential impact of what she does, and where she finds the “strength” for it all. We explore how one can have hope and at the same time realistic expectations and why this journey is one of personal growth with its golden moments.

On this week's episode of Grave to Great, Tracy Wood invited Dr. Greg Phelps, Alleo Health's Chief Medical Officer, to answer a question she received from listeners about how to talk to a loved one who has received a lift-limiting diagnosis. When a family member receives a difficult diagnosis, it can be hard to come up with the words to say. There is also the thought that the patient may not want to discuss the matter. Dr. Phelps and Tracy explored why this is not true and the best ways to talk with a patient.

This week I am talking with Sarah Westfall about her son Carter and her experience with grief over the past 10 years. Carter was diagnosed with a prenatal life-limiting condition and during our time together she talks about what it was like to make the decision to continue carrying a baby that would not live long outside the womb, what she would tell a mom who has recently received a life-limiting diagnosis for her baby and what she wishes she had known about carrying and delivering a baby with a life-limiting diagnosis. Sarah also talks about navigating marriage over the past 10 years of life after loss and the two specific things that her and husband did to navigate the challenges that exist in a marriage after the loss of a baby. Sarah also shares candidly about her faith amidst her journey of loss and she talks about what it was like to be at a different place spiritually than her husband in the years following their son’s death. Sarah is really open in this interview about her faith journey and if you have ever asked questions like “Could God have healed my baby? If so, why didn’t he? Did he plan this? Could He have stopped it? Why didn’t He?” Sarah’s words are going to bring you a lot of comfort and hope. And if you are curious or interested about God, Sarah gives her thoughts on a good place to start on learning more. We cover so much in this episode about loss and grief and marriage and spirituality, I love that Sarah shares from a perspective of having walked this journey for many years now. She brings encouragement and reminders of hope as someone who has been there and knows. I think her words and insights are going to really be a blessing to you. EPISODE 114 SHOW NOTESwww.themorning.com/blog/episode114 MARRIAGE RESOURCESwww.themorning.com/marriage FAITH RESOURCESwww.themorning.com/hope SUBMIT YOUR MOTHERHOOD STORYwww.themorning.com/mymotherhoodstory  

I’m chatting with Lindsey Dennis about how the loss of her two daughters shaped her very young marriage. We talk about the patterns that developed as a result of experiencing such devastating loss so early in a marriage and what advice she would give to a couple new in their marriage and navigating grief. We talk about how to navigate the reality of grieving differently than your spouse and she gives tangible advice about that that I think will really encourage you. She shares very transparently and honestly about what she would do differently in regards to her relationship with her husband. Lindsey talks about what it looked like for her and her husband to pursue one another amidst grief; she shares honestly about how difficult that was for her and if you are feeling similarly the practical advice about this will be tangibly helpful and encouraging to you. We talk about how important communication is but not just how important it is, which feels really obvious - but Lindsey gives some really helpful advice when I ask her what it looked like practically to communicate amidst grief -- especially when you are grieving differently than your spouse.  Lindsey shares the one question her counselor encouraged her and her husband to ask one another on a consistent basis. And please please make sure to listen all the way to the end because Lindsey’s final words offer such incredible hope.  LINDSEY'S FULL STORY: EPISODE 41www.themorning.com/blog/episode041 EPISODE 113 SHOW NOTES www.themorning.com/blog/episode113 LIVE Q&A / HOPE HANGOUT Once a month we host a live Q&A and Lindsey will be joining us for this month’s q&a as we discuss marriage after loss. For details about how to join our March Hope Hangout, or to rsvp head to:  themorning.com/hopehangout  MARRIAGE RESOURCES29 Date Night Ideas:  themorning.com/datenight Build your marriage and reconnect with your spouse, even when you are in the depths of grief, with these date night Ideas. Check out all the resources we have on marriage by heading to themorning.com/marriage.  

My guest this week is Adeyling Fiallos. Adeyling experienced a miscarriage that was later followed by the death of her newborn son, Sage, due to a life-limiting condition. Adeyling became an advocate for pregnancy and infant loss in her community and founded Sage and Sara Candle Co (named after her babies) where she makes beautifully scented candles and gives back to hospitals and nonprofits with each purchase. Her mission is to help bring light and comfort to parents amidst the dark days following the loss of their child(ren).    Adelying and I talked about many aspects of loss as it related to her story specifically. We talked about what it was like to receive a prenatal life-limiting diagnosis, what it was like to carry a baby you knew would likely not live very long outside the womb, what it was like to prepare for birth and very profoundly what it was like to go home without her baby. Where everything looked as though nothing had changed but everything had changed. She would never be the same. And she gives helpful and practical advice to any mom listening who has been given a prenatal life-limiting diagnosis about how to prepare for birth and what to expect in the days after.   We also talk about those first few weeks and months after her son died, specifically as it relates to her mental and emotional health. We talked about how grief and depression and postpartum depression have very similar symptoms and I encourage listeners then and I’ll encourage you now, if you have any thoughts of harming yourself or are experiencing intense emotions in a way that is inhibiting normal life functions, please seek professional medical help right away. As always you can Call 911 for emergency services or go to the nearest emergency room. Or call the toll-free 24-hour hotline of the National Suicide Prevention Lifeline at 1-800-273-TALK. No matter where you are in your grief journey Adeyling shares some very practical advice about what has helped her mental and emotional health since experiencing her losses that I think will be really helpful to you. She talks about the role acupuncture played as well as sleep medication. She talks about how valuable writing and journaling was to her as well as finding the right grief support group and how helpful online communities were to her. This would be a great time to remind you that if you are not a part of our joyful mourning community -- we would really love to have you. Life after baby loss is incredibly lonely and we want to come alongside and remind you that you are not alone. We are with you. We understand what you are walking through. Come join us by heading to themorning.com/community.     Adeyling also shares her thoughts about trying to conceive again and we talk about what pregnancy after loss has been like for her. At the time of this recording Adeyling was 18 weeks pregnant and if you are pregnant after loss or thinking about trying to conceive or currently trying, I think you will be able to relate to what she has to say about this in a profound way.  And as we mentioned last week in our episode with Maggie Koch about pregnancy after loss we know how hard the pregnancy after baby loss journey is, so we have created several free resources for you that will be tangibly helpful. To check out those resources, head to our Pregnancy After Loss Resource library at themorning.com/pregnancyafterloss.    Lastly, Adeyling talked about the value of having a strong support system in a pregnancy after loss -- a community you can count on and rely on. We agree with Adeyling and that is why we created a free online community just for the pregnancy after loss conversations. Pregnancy after loss is a unique journey deserving of its own safe space and community where you can talk openly about what you are experiencing -- this community comes alongside our existing main community I mentioned previously to provide support for a season of pregnancy after loss. Come join us by heading to themorning.com/pal, that’s themorning.com/pal. We are so hopeful for what this new community will offer to a woman in a pregnancy after loss journey. One more time, to join us head to themorning.com/pal.    This episode is tender and honest and full of relatable moments and helpful wisdom. I think it’s going to really bless you today. - THE JOYFUL MOURNING COMMUNITY www.themorning.com/community PREGNANCY AFTER LOSS COMMUNITY www.themorning.com/pal SHOW NOTES  www.themorning.com/blog/episode110  

In today’s episode I am talking with one of our Joyful Mourning Community members, Amy Lagomarsino about her motherhood journey. A journey that has been filled with incredible loss and yet even amidst tears Amy speaks with joy and hope. Amy shares her story of infertility and seasons of waiting, she shares about pregnancy loss and miscarriage, she shares about her daughter Ella who received a life-limiting diagnosis and lived for 27 hours and she also shares honestly and tenderly about being pregnant again after such loss. Like I said, her journey has been full of the hardest of things and yet she shares in a way that reminds me that even in the middle of such loss there is hope to be found.  During our time together, Amy not only shares her story but really helpful wisdom she has learned along the way from the different experiences that make up her motherhood journey.  She has words of wisdom for the woman in a season of waiting and wondering if she will ever get pregnant. She has wisdom and encouragement for the woman who has just experienced a miscarriage. She talks about how she prepared for the birth of her daughter Ella and what advice she would give to a woman who has been given a life-limiting diagnosis. She shares what it was like to walk her son Lorenzo through the loss of his baby sister. We talk honestly about guilt and what to do with all the could-haves or should-haves. We talk about how she said her heart could not handle another loss and that meant no more trying to conceive again, you’ll have to tune in to hear what changed her mind. We talked about the tangible ways she mentally prepared to try and conceive again and how she dealt with others’ excitement over a pregnancy after loss when she just wasn’t quite there yet. In fact, if you love a grieving mom, her explanation of why it was hard for her to tell others she was pregnant again might be really helpful and insightful to you. I specifically loved and was so encouraged by how her parents and extended family responded when she told them she was pregnant again. I wish every friend and family of a grieving mom could here at least that portion of the episode because it would just communicate an incredible amount of love in such a tender moment. We even squeeze in how she chose to celebrate Ella’s birthday and honor her at Christmas  and why it felt so important to do so. If you are a grieving mom, what she shares might give you some tangible ideas for your own celebrations, anniversaries and holidays. And if you love a grieving mom I think Amy’s thoughts on this might help you better understand a grieving mom. This episode is full to the brim of real life wisdom about a journey no one asks for but many of us are on. I pray that this honest conversation is a blessing to you as you navigate your own journey.    FREE ONLINE COMMUNITY FOR PREGNANCY OR INFANT LOSS If you are feeling alone in your grief I want to invite you to come join our free online community, The Joyful Mourning Community, where I met Amy and was first introduced to her story. Life after baby loss can be incredibly lonely and isolating, but it doesn’t have to be. Come join our community and find hundreds of women who like you, are looking for hope in this grief journey. For all the details: www.themorning.com/community.   PREGNANCY AFTER LOSS And because we mentioned pregnancy after loss in this episode I thought it would be helpful to remind you about the free download we created, 40 Verses for 40 Weeks. A verse to meditate, think on and study for every week of your pregnancy. Because we know that pregnancy after loss is incredibly hard and we wanted to give you something tangible that would remind you of hope and peace in moments of fear. To access that free download head to www.themorning.com/4040.   HOW TO LOVE A GRIEVING FRIEND We have a super simple free checklist of how to love a grieving friend. It includes a list of "don't do this, instead do this" ideas, things to avoid saying and helpful things to say. To download a free simple checklist about how to love a grieving friend head to www.themorning.com/friendsandfamily.   SHOW NOTESwww.themorning.com/blog/episode108

Building strength and emphasizing healthy movement through physical therapy can be a valuable tool to help people who have eating disorders. It also is a means of improving people’s long-term recovery. https://www.choosept.com/radio/detail/value-of-physical-therapy-in-addressing-life-limit

Listen in to this special conversation among 4 friends about navigating friendship amidst baby loss. Katherine’s son was diagnosed with a prenatal life-limiting diagnosis at her 20 week anatomy scan and throughout our conversation we discuss how these 3 women, Susie, Sarah, & Tara came alongside her during the days, weeks and months that followed the diagnosis. We talk about what it was like to receive that news, all the practical things they did to show up for her and make sure she was cared for in that season and what advice they would give someone who loves a mom who has received a life-limiting diagnosis for her baby. Katherine also gives wisdom to a mom who is in this situation and is not feeling cared for by those around her. This episode is really really special and I love that we get to hear from 4 different perspectives, there is so much wisdom to be learned from these women. Make sure to listen all the way to the end when these women give their final word of encouragement -- I think it will be incredibly helpful to you.    HOW TO LOVE A GRIEVING FRIENDIf you love a grieving mom, check out episode #94 about how to love a grieving friend, it’s a simple list of 10 don’t do this instead do this.  To download a free simple checklist about how to love a grieving friend head to www.themorning.com/friendsandfamily, that’s themorning.com/friendsandfamily. On that page you will also be able to access all of the existing resources we have about how to love a grieving mom -- if you love a grieving mom I think these resources will be very helpful to you.   DAYBREAK CONFERENCE Daybreak is a free virtual event for women finding light in the darkness and joy in the mourning after baby loss. This is a one day event, with an incredible speaker lineup, a live q&a panel and even small group breakout sessions. For all the details about Daybreak, our first ever virtual event >> daybreakconference.com.

How do you reframe a terminal disease as a life-limiting experience? In this episode of Defining Moments, guest host Dr. Erika Kirby speaks with Dr. Chad McBride and Dr. Kathy Miller on how they’ve been co-narrating Chad’s life in the wake of his diagnosis with amyotrophic lateral sclerosis (ALS), commonly referred to as Lou Gehrig’s disease. In raw and honest form, Chad reflects on the diagnosis and its impact. Together, Chad and Kathy describe their joint efforts of legacy leaving and memoir writing. Beyond clarifying these narrative endeavors, Chad and Kathy challenge listeners to cherish relationships lost and found. Dr. McBride and Dr. Kirby are Professors in the Department of Communication Studies at Creighton University. Dr. Miller is a retired academician who now writes fiction and nonfiction professionally. You can read more about Dr. McBride’s ALS experiences in Psychology Today at: https://www.psychologytoday.com/us/blog/medical-humanities-mamas/202008/experiencing-the-unimaginable-dying-and-leaving-your-child

"We don’t want to be a burden but the reality is, we are carrying a big burden. And we need people. We have to be vulnerable and to say what we need." Kelly Griffin In this episode we are talking all about friendship amidst loss and grief. In this episode I have the privilege of interviewing best friends Kelly & Caroline. Kelly received a prenatal life-limiting diagnosis of Trisomy 18 for her son Reeves and during our time together she and Caroline share honestly and tenderly about their friendship and what role it played in Kelly’s loss and healing journey. Caroline gives incredibly helpful and tangible wisdom about how to love a friend who is walking through a life-limiting diagnosis. If you know and love someone who has received a life-limiting diagnosis or has experienced the loss of a baby Caroline’s wisdom will be so helpful to you. Kelly gives wisdom to the mom who may be feeling lonely, who might not be surrounded by friends who step in to help. This episode is so encouraging as it reminds us that it is the simplest things that matter so much. That loving someone who is hurting does not have to look like grand gestures but rather an imperfect showing up that is consistent and prayerful and thoughtful has the potential to really help and bring healing. This episode is tender and raw and I am forever grateful for these two women and the friendship they represent. I pray it encourages you to step into the messiness of friendship after loss as it reminds you that it is absolutely worth it.    FREE GUIDE If you love a grieving mom, don’t forget to check out last week’s episode, Episode #94 about how to love a grieving friend, my simple list of 10 don’t do this instead do this.  To download a free checklist of the ideas shared in that episode head to  www.themorning.com/friendsandfamily. On that page you will also be able to access all of the existing resources we have about how to love a grieving mom -- if you love a grieving mom I think these resources will be very helpful to you.    JOIN THE COMMUNITY And as always, if you are a grieving mom, I want to invite you to join our free online community, The Joyful Mourning Community -- it’s a place where you can find women who have experienced the loss of a baby and are navigating this grief journey. It’s a safe place where you can ask hard questions, lament, ask for prayer, a place where you can find women who understand what you are going through and can remind you you aren’t alone. To join our community head to themorning.com/community. I can’t wait to see you there.   SHOW NOTES: www.themorning.com/episode095  

If you could picture your dream life…How would it look like? Where would you be? with whom? doing what? AND most importantly, why are you not there, with those people/or person, doing exactly that???? On this episode, I discuss self limiting, self imposing beliefs about ourselves and our lives that we pick up ‘along the […]

This episode is sure to inspire you and strengthen your faith -- at least it did in me. Listen in as I chat with my new friend Lola who shares the story of her son Elijah. At Lola’s routine anatomy scan, the doctors gave these first time parents the news that their son had a life-threatening heart condition making it very unlikely that he would make it to term or be delivered alive. Against all odds, Elijah would be born and would live for weeks. He would get to meet his mama and daddy and many family members and friends. Lola’s story is not unlike many of you listening. Lola’s story is not that different from my own. And yet, her faith is vastly different. Making me pause and reflect and think about the truth that she shared during our time together -- that we can hope, that we can have joy, even in the mourning, despite all of our circumstances. She talks to me honestly about what her pregnancy with Elijah was like and her lack of fear is nothing short of a miracle and reminds me that God is able to bring supernatural peace that we cannot fully understand even into the darkest of places. Even when we receive the worst of news. Even when our world feels shaken. He can bring peace. Lola shares with me what she wish others knew about life after infant loss, what pregnancy after loss was like for her -- again, her story even in this is remarkable and incredibly encouraging. Lola also shares what she has learned about infant loss within the African culture and what she would like to see happen within that community in regards to baby loss. We talk about our spiritual walks and how there can be purpose in the pain, how her son Elijah’s life changed her forever.  Lola’s faith is contagious and I am incredibly grateful for her story.  If this is your first time joining us and this faith that Lola is talking about feels foreign or shaken I would love to invite you to download a free 7 day devotional that will encourage your heart and remind you of hope -- maybe for the first time. You can download that free resource by going to www.themorning.com, you can find it linked under the Resources tab.   JOIN THE COMMUNITY www.themorning.com/community SHOW NOTESwww.themorning.com/blog/episode086

Listen in as I chat with Stephanie Schoonover. Stephanie was given a life-limiting diagnosis for her daughter Grace at a routine 12-week ultrasound. In this episode Stephanie shares with us what it was like to continue her pregnancy and make the most of the time she did have with her daughter. Stephanie also shares all about how she prepared for Grace’s birth and what she wish others understood about what its like to receive a life-limiting diagnosis for your baby.    Stephanie shares with us her experience of joy while carrying her daughter Grace but also how the resources to help a family in this situation were lacking. As a result Stephanie founded the non-profit Carrying To Term and tells us all about that amazing organization in this episode.    If you or someone you know have received a prenatal life-limiting diagnosis, this is a must-listen episode. Like always, this episode is both practically helpful and honestly hopeful. I pray that no matter what brought you here today, this episode would serve as a reminder that you are never, ever alone in this journey and that you are more loved than you could ever imagine. Stephanie’s story has so much hope to offer and I pray that it blesses you today.   If this is your first time joining us and you have been given a life-limiting diagnosis for your baby, I want to say, I am so incredibly sorry. I want to also tell you that while you probably feel very alone right now, you are not alone. I would love to invite you to join our free online community where you can find other moms just like you who have walked or are walking now a similar journey. You can join us by heading to themorning.com/community. Also, we have created a lengthy list of resources just for you and you can access all of those by heading to themorning.com/lifelimitingdiagnosis. Thats, themorning.com/lifelimitingdiagnosis. I am grateful you are here and I pray that this episode and those resources I just mentioned will be an enormous blessing and help to you in this season and the season to come.   JOIN THE COMMUNITY www.themorning.com/community   SHOW NOTES www.themorning.com/blog

Listen in as I chat with Kristin Ironside, a mama who endured the heartbreaking journey of knowing the baby she carried would most likely not live more than a few hours. Kristin’s daughter, Annabelle was diagnosed with unilateral renal agenesis and unilateral multi cystic dysplastic kidney -- basically at her 18 week anatomy scan, Kristin learned that her daughter’s kidneys were not functioning properly and without properly functioning kidneys in the womb her little body could not produce amniotic fluid necessary for lung development. Non functioning kidneys and lungs would be lethal to her baby girl. Baby Annabelle could continue growing as a healthy baby in her womb, but they would need to prepare themselves for a stillborn or a life of "minutes to hours." In our time together Kristin shares what it was like to receive a diagnosis like that, one of incomprehensible heartbreak, and what it was like to carry Annabelle for another 15 weeks knowing she would not bring her home after she was born. Kristin shares very helpful and practical advice about how to prepare for a birth in a circumstance such as this but more than even practical advice she shares hope. She says “it is possible to have joy through it all.” and “one day you will get on the other side and you will get to say yeah i did make it and let me tell you how good God was through it all.” She gives such a hope-filled reminder as we are wrapping up when she says “God will give you the grace for all those moments that feel impossible now.”  This episode is both practically helpful and honestly hopeful. I pray that no matter what brought you here today, this episode would serve as a reminder that you are never, ever alone in this journey and that you are more loved than you could ever imagine. If this is your first time joining us and you have been given a life-limiting diagnosis for your baby, I want to say, I am so incredibly sorry. I want to also tell you that while you probably feel very alone right now, you are not alone. I would love to invite you to join our free online community where you can find other moms just like you who have walked or are walking now a similar journey. You can join us by heading to themorning.com/community. Also, we have created a lengthy list of resources just for you and you can access all of those by heading to themorning.com/lifelimitingdiagnosis. I am grateful you are here and I pray that this episode and those resources I just mentioned will be an enormous blessing and help to you in this season and the season to come.  -- SHOWNOTES: www.themorning.com/blog/episode084 COMMUNITY: www.themorning.com/community

JAMA Pediatrics Editors' Summary by Dimitri Christakis, MD, MPH, Editor in Chief, and Frederick Rivara, MD, MPH, Editor in Chief of JAMA Network Open, for the September 1, 2019 issue

Today I take you through WHY you might be holding yourself back from greatness and how to STOP doing it. Sometimes we limit ourselves and we have potential to do so much more!! Follow me on my fitness IG: https://www.instagram.com/michellevenafra/ Follow me on my personal IG: https://www.instagram.com/mvenafra/ Shop Supplements I recommend: https://www.amazon.com/shop/michellevenafra 25% off of Groceries: http://thrv.me/MwmfgW Listen to my podcast: https://itunes.apple.com/us/podcast/the-phoenix-effect/id1441232834?mt=2&i=1000423131960&fbclid=IwAR30drzIFwgVtg3-X6A6b2G5JTItiUaVdkR_fP6e079c4xFGkWR8LHPgUPE Click here to apply to one on one coaching: https://michellevenafra.typeform.com/to/bGcDLp Click here to get the hair products I use: http://4498499.mymonat.com The CBD Oil I use: https://www.mysoulcbd.com/?afmc=h7

I talk about Binaural Beats, finding yourself, how limiting beliefs can impact your self development, being a mum and juggling life. And my recent self developmental awakening ( if that’s even a word

Here is the link to Dallas’ current project with their Texas kiddo, Zuleyka Alvarado! http://redfredproject.com/zuleyka-txDallas Graham is the founder and creator of the Red Fred Project: a children’s book collaboration between himself and 50 children with critical illnesses across the 50 states. He created Red Fred and his colorful friends, The Jolly Troop, six years ago and has been telling stories with them ever since. Dallas is a photojournalist, graphic designer, writer and enjoys discovering creative ways of connecting people through their stories. He has produced a number of personal and community-driven projects and initiatives and can’t seem to turn off his “idea” switch. The Red Fred Project is a culmination of three of his favorite things: narratives, hope, and children.

Woman who married her dog; Paula Munier (The Borrowing of Bones), nominated for Mary Higgins Clark Prize; providing shelter for Newark, NJ dogs

This episode talks about belief systems and how they shape your life. We define them, identify how we form them and give strategies on changing them. --- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app

How does it feel to live with life-limiting illness from your first day? How does it influence the way you look at the world and what you believe. And what is the impact of living with an illness that so many people die of, to be close, from an early age, to people you outlive? Nineteen year old Claire Wineland has lived with Cystic Fibrosis since early in her childhood and it has led her to a life of service and connection. She has written a book, delivered a TED talk and started a foundation. And she has profound messages to share about what we all can do to face the fact of death and infuse our lives with purpose and meaning. We'll be talking about the amazing things she's learned, the amazing work she has already done, and the struggles it took for her and her family to find their way.

How does it feel to live with life-limiting illness from your first day? How does it influence the way you look at the world and what you believe. And what is the impact of living with an illness that so many people die of, to be close, from an early age, to people you outlive? Nineteen year old Claire Wineland has lived with Cystic Fibrosis since early in her childhood and it has led her to a life of service and connection. She has written a book, delivered a TED talk and started a foundation. And she has profound messages to share about what we all can do to face the fact of death and infuse our lives with purpose and meaning. We'll be talking about the amazing things she's learned, the amazing work she has already done, and the struggles it took for her and her family to find their way.

Dr. Jeanette welcomes Jo Ann Simon, author of Rose Colored Glasses: A Memoir of Love, Loss and Hope, to share how to see if your journey is challenged to be able to walk in love.  Jo Ann's husband started with a tick bite that progressed to Lyme disease and ALS.  The path she and her husband took is shared on the pages of her book. When you get a diagnosis of a life limiting crisis, does your life end at that moment and then it becomes another path in life that you just walk through as a ghost?  Perhaps, as Jo Ann has shared, it is time to continue to love and live in the moment as each day is a gift. What is our transition in life and can we let go with love, loss and hope?  Life is a continuum and can we say 'I love and always love forever'? Can we still hold on to our loved ones who have passed and still feel them in our present life? For more information visit: www.JoAnn-Simon.com For support with End of Life and Life Challenging events, sessions are available with Dr. Jeanette, visit:  www.MyPersonalAdvocate2.com or www.DrJeanetteGallagher.com

As Claire WIneland waits for the lung transplant she now needs, we re-air an interview with her. How does it feel to live with life-limiting illness from your first day? How does it influence the way you look at the world and what you believe. And what is the impact of living with an illness that so many people die of, to be close, from an early age, to people you outlive? Nineteen year old Claire Wineland has lived with Cystic Fibrosis since early in her childhood and it has led her to a life of service and connection. She has written a book, delivered a TED talk and started a foundation. And she has profound messages to share about what we all can do to face the fact of death and infuse our lives with purpose and meaning. We'll be talking about the amazing things she's learned, the amazing work she has already done, and the struggles it took for her and her family to find their way.

As Claire WIneland waits for the lung transplant she now needs, we re-air an interview with her. How does it feel to live with life-limiting illness from your first day? How does it influence the way you look at the world and what you believe. And what is the impact of living with an illness that so many people die of, to be close, from an early age, to people you outlive? Nineteen year old Claire Wineland has lived with Cystic Fibrosis since early in her childhood and it has led her to a life of service and connection. She has written a book, delivered a TED talk and started a foundation. And she has profound messages to share about what we all can do to face the fact of death and infuse our lives with purpose and meaning. We'll be talking about the amazing things she's learned, the amazing work she has already done, and the struggles it took for her and her family to find their way.

Erica Sprey of VA Research Communications speaks with Dr. Melissa Garrido, who is a health services researcher with the Geriatric Research Education and Clinical Center at the James J. Peters VA Medical Center in the Bronx, New York. Her research is focused on examining the quality of mental health care provided to Veterans with serious physical illnesses, such as advanced cancer. She hopes to better understand the need for mental health care in a palliative care setting, and if provided, the effects on health care utilization and cost. Read more: The impact of mental illness on palliative care outcomes for seriously ill Veterans

How does it feel to live with life-limiting illness from your first day? How does it influence the way you look at the world and what you believe. And what is the impact of living with an illness that so many people die of, to be close, from an early age, to people you outlive? Nineteen year old Claire Wineland has lived with Cystic Fibrosis since early in her childhood and it has led her to a life of service and connection. She has written a book, delivered a TED talk and started a foundation. And she has profound messages to share about what we all can do to face the fact of death and infuse our lives with purpose and meaning. We'll be talking about the amazing things she's learned, the amazing work she has already done, and the struggles it took for her and her family to find their way.

How does it feel to live with life-limiting illness from your first day? How does it influence the way you look at the world and what you believe. And what is the impact of living with an illness that so many people die of, to be close, from an early age, to people you outlive? Nineteen year old Claire Wineland has lived with Cystic Fibrosis since early in her childhood and it has led her to a life of service and connection. She has written a book, delivered a TED talk and started a foundation. And she has profound messages to share about what we all can do to face the fact of death and infuse our lives with purpose and meaning. We'll be talking about the amazing things she's learned, the amazing work she has already done, and the struggles it took for her and her family to find their way.

A discussion of the moral distress experienced by nursing and medical professionals within neonatal intensive care units (NICUs) and paediatric intensive care units (PICUs). Nick Brown interviews David Field, who wrote an accompanying editorial to the systematic review. Systematic Review Moral distress within neonatal and paediatric intensive care units: a systematic review - http://adc.bmj.com/content/101/8/701.full Linked Editorial Moral distress: an inevitable part of neonatal and paediatric intensive care? - http://adc.bmj.com/content/101/8/686.full Related podcast Life-Limiting and Life-Threatening Conditions in Children: a Framework for Practice - https://soundcloud.com/bmjpodcasts/the-archimedes-podcast-november-2015?in=bmjpodcasts/sets/adc-podcast

In this podcast Dr Mark Beattie, Editor-in-Chief of ADC, talks to Dr Vic Larcher from the Royal College of Pediatrics and Child Health about a supplement recently published in the journal. The supplement is entitled "Making decisions to limit treatment in life-limiting and life-threatening conditions in children: a framework for practice" and can be found online here http://adc.bmj.com/content/100/Suppl_2.toc