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Multiple Sclerosis (MS) is a complex neurological condition that impacts an estimated 2.8 million people worldwide. This week we explore the science behind MS, treatment options, and the lived experiences of those navigating life with this chronic illness. Multiple Sclerosis (MS) has been called "the disease of 1000 faces" for good reason - it manifests differently in almost every person it affects. Understanding MS: The Science Behind the Disease Dr. Zied Tayeb, neuroscientist and CEO of MyelinZ, explained the fundamental mechanism of MS in terms anyone can understand: "The brain communicates using electrical signals. These signals travel from one neuron to another through axons, which are protected by myelin sheets that help accelerate the transmission of these signals. In MS, the immune system mistakenly attacks these myelin sheets, leading to demyelination.” This disruption in communication between neurons explains why MS symptoms can vary so dramatically - the location of demyelination determines which functions are affected. "It could be the motor cortex, resulting in mobility issues, or the visual cortex, causing problems with vision," Dr. Tayeb noted. While the exact cause of MS remains unknown, researchers have identified several factors that may contribute to its development. According to our panel, MS is significantly more prevalent in women, who represent approximately 65% of MS patients - possibly due to women's more active immune systems making them more susceptible to autoimmune conditions like MS. Geographic distribution also offers clues, with higher rates in regions farther from the equator such as Canada, northern United States, and parts of Europe (with Denmark having a particularly high prevalence). This pattern has led scientists to investigate a potential link with vitamin D deficiency, though studies remain inconclusive. The Patient Experience: Hassan's Journey Few stories illustrate the unpredictable nature of MS better than that of Hassan Nada, entrepreneur, journalist, and self-described "MS warrior." Hassan's first symptom appeared in 2018 when he suddenly lost vision in his right eye while on holiday in Egypt. "I woke up one day, and out of nowhere, my vision was blurry to the point where I thought I was blind," Hassan recalled. Despite seeing an ophthalmologist, his condition went undiagnosed as MS. His vision eventually returned after treatment with corticosteroids. Four years later, after moving to Luxembourg, Hassan experienced sciatic nerve pain and numbness in his lower body. His general practitioner recognized the connection between his previous episode of optic neuritis and his current symptoms, immediately suspecting MS. "She screamed at me and had me go to the ER right away," Hassan shared. After extensive testing, including MRIs, blood tests, and a spinal fluid sample, the diagnosis was confirmed: Hassan had multiple sclerosis. The emotional impact of this diagnosis was profound. "My life changed from that moment onwards, and I went into complete depression," he admitted. But through the unwavering support of his wife and access to modern treatments, Hassan has found ways to adapt and advocate for others with MS. Treatment Approaches: Managing an Incurable Condition While MS currently has no cure, Dr. Tayeb emphasized that it is treatable. "Notwithstanding the fact that MS is incurable, it is treatable," he stated. "The problem is that every patient is different. The trajectory of the progression, diseases, symptoms are different.” Disease-modifying therapies (DMTs) aim to slow the progression of MS by suppressing or modulating the immune system. These treatments vary widely in their administration methods (pills, injections, infusions) and side effect profiles. Hassan's treatment journey illustrates the often challenging process of finding the right approach. After being diagnosed, he was unable to receive his doctor's first-choice treatment due to having a virus that made it dangerous for him. He then tried a pill-based DMT that, despite its high success rate with other patients, didn't work for him. Finally, he found success with a monthly subcutaneous injection called Kesimpta. "Last week I went to the neurologist office depressed," Hassan shared. "I was like, 'I know it didn't work.' She's like, 'No, it actually worked. There are no new lesions. You can now make long-term plans in life.'" Innovative Approaches: The Brain's Virtual Gym Dr. Tayeb and Samaher Garbaya, co-founders of MyelinZ, are taking a different approach to MS management. Their "virtual gym for the brain" uses neurotechnology to promote neuroplasticity - the brain's ability to form new neural connections. "We're trying to promote neuroplasticity in the brain," Dr. Tayeb explained. Their platform uses games to stimulate specific brain regions while measuring brain activity. Using machine learning, they analyze six different digital biomarkers to create personalized brain exercises. This approach draws inspiration from research showing that activities like playing musical instruments or singing can activate certain brain areas, potentially slowing disease progression by strengthening neural pathways. The Role of Support: Community and Family Multiple speakers emphasized that MS affects not just the individual but their entire support network. Anne Leurs, who manages the Multiple Sclerosis Society in Luxembourg, noted that MS typically appears between ages 20-40 - a critical period when people are building careers, starting families, and establishing their adult lives. "It's a very difficult period, this period of diagnosis," Anne observed. "It's a chronicle disease. This means that you will have to live your life on with this disease.” Hassan's experience underscores the crucial role of support systems. "MS either breaks a couple or it makes them the strongest couple in the world," he remarked. When first diagnosed, he told his wife she should leave. "She's like, 'It's because I love you that I'm not leaving, and we're going to make it out of this stronger than ever.'" Five years later, she remains his "backbone," managing his appointments and ensuring he takes his medications. For those without close family support, community organizations like the Multiple Sclerosis Society provide vital resources, information, and connection. Complementary Approaches: The Mind-Body Connection Mariette Lentz, a Luxembourgish soprano who specializes in the Alexander Technique, offered insights into complementary approaches that can help manage MS symptoms and improve quality of life. The Alexander Technique is "a mental technique" focused on "exploring the relationship between our thoughts and our movement," Mariette explained. While not a therapy or cure, it offers tools to help reduce stress and bring the nervous system to a calmer state - particularly valuable for MS patients who often experience anxiety related to their unpredictable symptoms. This, naturally, is a method that can help us all. The Daily Reality Hassan painted a vivid picture of what daily life with MS can entail: "Imagine waking up every day of your life with the worst hangover in the world without having to drink.” Despite this challenge, he maintains a positive outlook and has channeled his experience into advocacy work, connecting with MS communities around the world. "I'm disclosing some personal parts of my life in hopes that it's actually going to benefit people," he explained. Looking Forward: Hope in Research and Community While MS remains incurable, advances in treatment options continue to improve outcomes for patients. From traditional DMTs to innovative approaches like brain-computer interfaces and neuroplasticity training, the landscape of MS management is evolving rapidly. As our conversation demonstrated, the combination of cutting-edge medical science, dedicated healthcare professionals, strong personal support systems, and community resources creates a foundation for living well despite MS. For those navigating the complex journey of MS - whether as patients, family members, or healthcare providers - knowledge and community remain powerful tools. By continuing to share stories like Hassan's and insights from experts like Dr. Tayeb, Samaher Garbaya, Anne Leurs, and Mariette Lentz, we can work toward greater understanding and better support for everyone affected by this challenging condition. https://myelinz.com https://www.msweb.lu/wp/
Hala Zainal, Senior Programs and Community Outreach Manager, at the National Multiple Sclerosis Society (NMSS) explains the impressive support that the NMSS provides for the community of the UAE, through both medical assistance and mental health assessments with their newly established helpline: 800677. Listen to #Pulse95Radio in the UAE by tuning in on your radio (95.00 FM) or online on our website: www.pulse95radio.com ************************ Follow us on Social. www.facebook.com/pulse95radio www.twitter.com/pulse95radio www.instagram.com/pulse95radio
Christine Stephany joins us with a story from her childhood about how she and her father came to understand each other better. Christine W. Stephany is a daughter, sister, Mom, YaYa and friend. Years of note taking and jotting down thoughts brings her to a turn in the highway…learning to writing. With a lifelong spirit of curiosity she embraces nature, biking, learning, people and an evolutionary career of 47 years. Working with the national and local Multiple Sclerosis Society, Wreaths Across America (for Veterans) and Valentines for Veterans are her “give-backs.” She shares her time in Lexington and in Northern Kentucky, with extended family and lifelong friends.Theme song "Appalachian Lofi" composed and performed by Bryan Klausing and Christine Cole.
How does Chronic Illnesses affect your Mental Health?
Gwendolyn Love and Jill Gwydir are both members of the leadership team at Lunchbreak, a New Jersey nonprofit that provides food, clothing, life skills, and fellowship to those in need. Gwen, the current Executive Director of Lunch Break, was previously the community director for a partnership between the Township of Neptune, New Jersey and the state's Urban Coordinating Council that helps communities in need of revitalization. Jill, has also worked for many non-profit organizations, such as the YWCA of the City of New York, and the Multiple Sclerosis Society. Both Gwen and Jill's passion for community outreach combined with the support of an incredible staff, Board of Directors, volunteers, and donors has helped Lunch Break provide residents of Monmouth County and beyond help for today and hope for tomorrow.
Send us a Text Message.In this episode, I speak with John James Santangelo on the topic of core values, dealing with failure, emotional states and setting goals.★ John's Bio: ★ John James Santangelo PhD... a nationally acclaimed speaker, NLP trainer, author and results coach has been a guiding force in empowering individuals and businesses to excel at their peak performance. He is a foremost authority in success principles & expert in the field of communication, a behavioral specialist, NLP trainer, and a Ph.D. as a clinical hypnotherapist.John has the knowledge, experience and expertise working with companies such as Learning Annex, CSUN University, Mary Kay, RE/MAX Realtors, Well Point, Multiple-Sclerosis Society, Make-A-Wish Foundation, Xerox, the L.A. Sheriff's Dept., the Teamsters Union, AND months after 9/11, with the US Army counter-intelligence team.Connect with John:https://lanlp.com
Send us a Text Message.Join us for an enlightening discussion with Anjali Vyas from the Pune chapter of the Multiple Sclerosis Society of India. Anjali's journey, starting from her initial symptoms of optic nerve pain and vision loss to her eventual diagnosis, is a powerful testament to resilience. As a chemical engineer and IELTS trainer, she shares her compelling story and her advocacy work through her organization, Believe in the Invisible, which aims to raise awareness and support for individuals with invisible disabilities.Crucial conversations unfold as we tackle the significant challenges in disability recognition and documentation in India. Chronic neurological conditions and congenital heart conditions often slip through the cracks in official statistics, resulting in policies that fail to provide adequate support. We shine a light on the urgent need for detailed data collection, including gender-disaggregated data, and discuss how social stigma and harmful cultural beliefs exacerbate the marginalization of individuals with disabilities, particularly women and transgender individuals.Lastly, we dive into the labyrinthine process of obtaining a disability certificate, especially for those with invisible disabilities like multiple sclerosis. Anjali shares eye-opening insights about the bureaucratic obstacles and societal misconceptions that complicate this journey. We stress the importance of education about disability rights for both the private sector and disabled individuals. Moreover, we underline the necessity of a holistic, inclusive approach that supports individuals and their communities, fostering a truly inclusive society. Tune in for a candid and thought-provoking episode that highlights the importance of advocacy and systemic change for disability rights.Support the Show.Follow axschat on social mediaTwitter:https://twitter.com/axschathttps://twitter.com/AkwyZhttps://twitter.com/neilmillikenhttps://twitter.com/debraruhLinkedInhttps://www.linkedin.com/in/antoniovieirasantos/ https://www.linkedin.com/company/axschat/Vimeohttps://vimeo.com/akwyz
At Consumers Credit Union, we take pride in supporting numerous charitable causes that are important to our local community. Among the many worthy organizations we partner with, one holds a special place in our hearts - the Multiple Sclerosis Society. On this special episode, we are pleased to bring you an update from Becky Nap, one of our employees, who has shown bravery and resilience living with MS. Becky will share her experience navigating life with this complex disease. We are also joined by Sarah Borst, Director of the Walk MS event. Sarah provides details on this major fundraising event and how our community can participate to help find a cure for MS.
"Clarity is power. Get clear on your goals and take action." - John James Santangelo, PhD John James Santangelo, Ph.D., is a nationally acclaimed speaker, author, communications skills expert, and results coach. He's a guiding force in empowering individuals and businesses to achieve peak performance. An authority in behavioral change as an NLP trainer and clinical hypnotherapist. He's the founder of Los Angeles Premier NLP Training Center, a personal and professional training company dedicated to helping people unleash their natural capability, clarify their goals, overcome their roadblocks, and produce outstanding results. John has worked with companies such as The Learning Annex, Los Angeles Sheriffs Dept., Mary Kay Inc, Multiple-Sclerosis Society, Make-A-Wish Foundation, Well-Point, Xerox, RE/MAX Realtors, the Teamsters Union, and post 9/11 as a head trainer teaching lie-detection skills to the US Army counter-intelligence team. John James Santangelo shares his personal story of hitting rock bottom and making the decision to change his life. He discusses the power of the mind and how our beliefs and attitudes shape our reality. John emphasizes the importance of taking responsibility for our actions and using language patterns to create a positive mindset. He introduces three keywords to eliminate from our vocabulary: "but," "try," and "problem." John also highlights the significance of failure as feedback and the role of spirituality in goal setting. Key Takeaways: The unconscious mind runs 90% of our brain and is focused on avoiding pain. Change the word "but" to "and" to create a positive language pattern. Eliminate the word "try" from your vocabulary and replace it with "will" or "won't." Replace the word "problem" with "challenge" to shift your mindset. Failure is not a negative outcome but rather feedback for growth and learning. Get in touch with John James Santangelo: www.LANLP.com https://www.facebook.com/nlptrainingcenter/ Access your free chapters and get started “Setting Goals” in your life! https://lanlp.com/setting-goals-sign-up Get your FREE Results Coaching Session: https://lanlp.com/coaching Get in touch with Jana and listen to more Podcasts: https://www.janashort.com/ Show Music ‘Hold On' by Amy Gerhartz https://www.amygerhartz.com/music. Get the Best Holistic Life Magazine APP! One of the fastest-growing independent magazines centered around holistic living. https://issuu.com/store/publishers/bestholisticlifemagazine/issues/bhl_jan_2024_digital_v01a_copy Connect with Jana Short: https://www.janashort.com/contact/
Making Quality Decisions with NLP John James Santangelo Pt 2 Our guest today is a dynamic and entertaining gentleman who comes to us from Los Angeles, CA. He is a Communication Skills expert, Certified NLP Trainer, A PhD Clinical Hypno-therapist, and a Professional Results Coach! He's the author of the powerful books: Discovering NLP... Setting Goals & Discovering Trance! He's a volunteer for the Big Brothers & Sisters of America association, and Chrysalis (chris-a-lis) a homeless rehabilitation program as well as a spokesperson for the Make-A-Wish Foundation! He's coached and worked with companies such as: The Learning Annex, Xerox, Mary Kay, City of Hope, Well-Point, Microsoft, Multiple-Sclerosis Society, the Los Angeles Sheriff's Department, and worked regularly with The Teamsters Union, And months after 9/11, as head trainer teaching lie-detection skills to the US Army Counter-Intelligence Team! This is part two of a great conversation with John James Santangelo. Are “Affirmations” a type of NLP? Christians do this all the time and not even think about. “I am in Christ.” “I am an overcomer.” “I am blessed.” “I am prosperous. “I can do all things through Christ who strengthens me, etc.” You have a training center in Los Angeles where you hold these classes. I believe I read it is 12 days long and is a total of 120 hours. What do your students learn during that time and what certifications do they leave with? As we get ready to close, is there anything you would like to say to our listeners that we have not covered? John, this is all so interesting. I could talk to you for hours about this. If someone has some questions, as I'm sure they will, how can they get in touch with you or your organization? You also said you had a free gift for our listeners today, is that right? I'll put links to all of this in the show notes below. Folks, life is made up of and consists on a series of decisions. Decisions you make on a daily basis. What clothes to wear… what to eat for lunch… who to marry… what house to buy… what job should you apply for, etc. Your Faith is definitely based on a decision. Your decision to trust in Christ, etc. Quality decision can bring a greater quality to your life. That is what we are talking about today with John James Santangelo. I believe you received something today that will benefit you down the road. Amen! I encourage you to drop down into the show notes and reach out to John James Santangelo right now. While this is fresh in your mind. Check out the resources on his website and get in touch if you think something on there will help you. Amen! Be sure to click that link to his free gift for our audience as well. Praise God! CONTACT INFORMATION: Email: info@lanlp.com Website: https://lanlp.com FREE GIFT: “Setting Goals” – https://lanlp.com/setting-goals-sign-up
This week we look at the courage and Christianity of Navalny; Mongolia; France outlaws vaccine criticism; Islamist intimidation in the House of Commons; Steve Wright no more; Fani WIllis, Mark Steyn and US justice; Virgin Island; John Lewis's Identity; Dr Phil on Trans; BBC promotes male 'breastfeeding'; Multiple Sclerosis Society bans elderly woman for saying men can't become women; Lyles and the Lion; The Lying Celebrity Vicar; Rave in the Nave; and the funeral of Glen Millburn with music from Talking Heads, The Hu, Del Amitri, Borodin, Planxty; Jean Baptiste Lully and Corey Voss
Making Quality Decisions with NLP John James Santangelo Pt 1 Our guest today is a dynamic and entertaining gentleman who comes to us from Los Angeles, CA. He is a Communication Skills expert, Certified NLP Trainer, A PhD Clinical Hypno-therapist, and a Professional Results Coach! He's the author of the powerful books: Discovering NLP... Setting Goals & Discovering Trance! He's a volunteer for the Big Brothers & Sisters of America association, and Chrysalis (chris-a-lis) a homeless rehabilitation program as well as a spokesperson for the Make-A-Wish Foundation! He's coached and worked with companies such as: The Learning Annex, Xerox, Mary Kay, City of Hope, Well-Point, Microsoft, Multiple-Sclerosis Society, the Los Angeles Sheriff's Department, and worked regularly with The Teamsters Union, And months after 9/11, as head trainer teaching lie-detection skills to the US Army Counter-Intelligence Team! Amen! I know you're going to get a lot of great information today… so grab a pen and paper and prepare to take some notes. Amen! Help me welcome to the program, John James Santangelo. John, it is a blessing to have you join us today, brother! I've been looking forward to our conversation! First question I always start with is this… other than that brief information I just shared, can you tell us in your own words, “Who is John James Santangelo?” Let's start with this… I know you started at age 15 as a professional magician – I've always been fascinated with that profession. I'm nowhere near a professional status, but I was able to keep my grandkids entertained… I'm always picking up another illusion package along the way from time to time… How did this impact you and did this influence your interest in the NLP line of work? Now, NLP stands for Neuro Linguistic Programming. Some folks may think that is hypnosis or mind-control or something. But it's not… can you share with us what it is – in layman's terms? Most people think it is a form of getting people to buy things… used in sale and marketing or the “law of attraction” in relationships and things like that. But it is used in a wide variety of things. Can you share a few of those with us? Most people probably never thought they were being exposed to NLP in those examples. Like weight loss or leadership skills or coaching programs… How does NLP help in, say “weight loss?” Quality decision can bring a greater quality to your life. That is what we are talking about today with John James Santangelo. I believe you received something today that will benefit you down the road. Amen! I encourage you to drop down into the show notes and reach out to John James Santangelo right now. While this is fresh in your mind. Check out the resources on his website and get in touch if you think something on there will help you. Amen! Be sure to click that link to his free gift for our audience as well. Praise God! CONTACT INFORMATION: Email: info@lanlp.com Website: https://lanlp.com FREE GIFT: “Setting Goals” – https://lanlp.com/setting-goals-sign-up
(2:00) OH! Dem Golden Slippers — who cares about poison jabs & lockdowns, they be shinyWATCH: Trump continues to brag about his "plandemic"WATCH: Dr. Peter McCullough says Trump and Biden have the same position on Covid & vaccinesWATCH: Entertainer Matt Cairns talks about how the TrumpShots destroyed his life and livelihood - no mandate but pressure and liesWATCH:"A good Christian man" — the stunning idolatry of their golden idolSelf-professing Christians still defend him — pray for him? Yes. Defend his conduct? NeverAn unjust "justice system" was around before, during, and after Trump — but no one cares about their neighbor, only when it happens to Trump(42:59) Follow the MoneyTrump's sneakers sell-out within hours — just like his NFT's and just like the man himself when he became PresidentEli Lily, whose CEO Alex Azar Trump put as HHS head to run the pandemic, will be the first $TRILLION Pharma companyWill ALL financial resources of RNC (Republican National Committee) be given to Trump? His co-chair daughter-in-law says "EVERY PENNY" they have for the Trump campaign. Who needs any other Republicans if you have Trump(56:58) In the USA, Trump, Fauci, Navarro used ventilators (and cash bonuses) to kill patients with respiratory illness. In the UK, they did it with a drug called Midzaolam — CONTRAINDICATED for respiratory illness, but Matt Hancock, a bureaucrat like Peter Navarro, ramped it up(1:09:58) David Martin on the creation of the W.H.O. — a criminal enterprise from the beginning(1:26:07) FEMA wants some of the Trump cash back from counties(1:27:43) Was Wuhan Gain-Of-Function lab leak real or a distraction?(1:38:28) The Trucker Boycott of NYC How is this different from the Canadian Trucker Freedom Convoy or the EU Farmer protests?(1:38:28) Letters from listeners street preaching & the cops in London people who resigned over the jab and came out MUCH better at work Pronouns and EMS(2:07:11) "Trans Milk" — drugs given to men to make them lactate have a horrific side effect — FOR BABIES. So, who cares?(2:11:08:47) Horror stories surface about trans-surgeries; Multiple Sclerosis Society fires 90 yr old volunteer after 60 years for asking about pronouns — and remains defiant about the firing(2:18:59) St Patrick's Cathedral in NYC cleaning house after a sacrilegious trans activist funeral; "The Chosen" Dallas Jenkins praises Super Bowl "He Gets Us" ad(2:28:42) Nalvany — political battlegrounds and outrageous hypocrisy all around. What about Assange? What about the American journalist jailed & killed by Ukraine? Why is anyone defending ANY government, Putin or our own, that would do this?(2:47:06) BigCon media is fascinated about Tucker & Mike Benz interview. We've known all this for years, so why is the former Trump official and the former FOX news guy telling us at this time that the Intel Community created the social media companies?Find out more about the show and where you can watch it at TheDavidKnightShow.comIf you would like to support the show and our family please consider subscribing monthly here: SubscribeStar https://www.subscribestar.com/the-david-knight-showOr you can send a donation throughMail: David Knight POB 994 Kodak, TN 37764Zelle: @DavidKnightShow@protonmail.comCash App at: $davidknightshowBTC to: bc1qkuec29hkuye4xse9unh7nptvu3y9qmv24vanh7Money is only what YOU hold: Go to DavidKnight.gold for great deals on physical gold/silver
(2:00) OH! Dem Golden Slippers — who cares about poison jabs & lockdowns, they be shinyWATCH: Trump continues to brag about his "plandemic"WATCH: Dr. Peter McCullough says Trump and Biden have the same position on Covid & vaccinesWATCH: Entertainer Matt Cairns talks about how the TrumpShots destroyed his life and livelihood - no mandate but pressure and liesWATCH:"A good Christian man" — the stunning idolatry of their golden idolSelf-professing Christians still defend him — pray for him? Yes. Defend his conduct? NeverAn unjust "justice system" was around before, during, and after Trump — but no one cares about their neighbor, only when it happens to Trump(42:59) Follow the MoneyTrump's sneakers sell-out within hours — just like his NFT's and just like the man himself when he became PresidentEli Lily, whose CEO Alex Azar Trump put as HHS head to run the pandemic, will be the first $TRILLION Pharma companyWill ALL financial resources of RNC (Republican National Committee) be given to Trump? His co-chair daughter-in-law says "EVERY PENNY" they have for the Trump campaign. Who needs any other Republicans if you have Trump(56:58) In the USA, Trump, Fauci, Navarro used ventilators (and cash bonuses) to kill patients with respiratory illness. In the UK, they did it with a drug called Midzaolam — CONTRAINDICATED for respiratory illness, but Matt Hancock, a bureaucrat like Peter Navarro, ramped it up(1:09:58) David Martin on the creation of the W.H.O. — a criminal enterprise from the beginning(1:26:07) FEMA wants some of the Trump cash back from counties(1:27:43) Was Wuhan Gain-Of-Function lab leak real or a distraction?(1:38:28) The Trucker Boycott of NYC How is this different from the Canadian Trucker Freedom Convoy or the EU Farmer protests?(1:38:28) Letters from listeners street preaching & the cops in London people who resigned over the jab and came out MUCH better at work Pronouns and EMS(2:07:11) "Trans Milk" — drugs given to men to make them lactate have a horrific side effect — FOR BABIES. So, who cares?(2:11:08:47) Horror stories surface about trans-surgeries; Multiple Sclerosis Society fires 90 yr old volunteer after 60 years for asking about pronouns — and remains defiant about the firing(2:18:59) St Patrick's Cathedral in NYC cleaning house after a sacrilegious trans activist funeral; "The Chosen" Dallas Jenkins praises Super Bowl "He Gets Us" ad(2:28:42) Nalvany — political battlegrounds and outrageous hypocrisy all around. What about Assange? What about the American journalist jailed & killed by Ukraine? Why is anyone defending ANY government, Putin or our own, that would do this?(2:47:06) BigCon media is fascinated about Tucker & Mike Benz interview. We've known all this for years, so why is the former Trump official and the former FOX news guy telling us at this time that the Intel Community created the social media companies?Find out more about the show and where you can watch it at TheDavidKnightShow.comIf you would like to support the show and our family please consider subscribing monthly here: SubscribeStar https://www.subscribestar.com/the-david-knight-showOr you can send a donation throughMail: David Knight POB 994 Kodak, TN 37764Zelle: @DavidKnightShow@protonmail.comCash App at: $davidknightshowBTC to: bc1qkuec29hkuye4xse9unh7nptvu3y9qmv24vanh7Money is only what YOU hold: Go to DavidKnight.gold for great deals on physical gold/silver
S3E027 - Another conservative organization forced to admit in court that there was no ballot fraud in the 2020 election; the Multiple Sclerosis Society 'fires' a 90-year-old woman who's volunteered for them for 60 years because she failed to understand the use of pronouns as it relates to DEI policies.
John James Santangelo PhD is an expert in behavioral change work, a clinical hypnotherapist, NLP trainer and author of 8 books. He is founder and head trainer of Los Angeles' Premier NLP Training Center. A personal and professional training company dedicated to helping people unleash their natural capability, clarify their goals, and overcome their mental roadblocks so they can produce outstanding results. John has worked with companies such as The Learning Annex, Los Angeles Sheriffs Dept., Mary Kay Inc, Multiple-Sclerosis Society, Make-A-Wish Foundation, Well-Point, Xerox, RE/MAX Realtors, the Teamsters Union, and post 9/11 as head trainer teaching lie-detection skills to the US Army counter-intelligence team. In this episode, John shares some mindset shifts, observations and habits that will help you apply NLP to everyday life to achieve the results that you want. IN THIS EPISODE YOU WILL DISCOVER: 00:01:42 - What NLP is 00:07:25 - Practical applications of NLP 00:14:30 - Focus - meaning - action 00:25:41 - The ritual of 'priming' to plan your day out every morning 00:32:11 - Lack of clarity leads to lack of results 00:40:15 - The trick is asking the right questions Learn more about John here: https://www.lanlp.com/ Get his mini-course here: www.LANLP.com/free Instagram: @johnjamessantangelo
Ashley Pope is an incredible woman by any standard. She grew up mostly in the Ventura area of Southern California. She went to school graduating like any high school senior. She tried college and found that it wasn't for her. She had been working at a department store while in high school and for a bit after that including when she decided college was not her forte. She spent a few years working in sales for an ophthalmological company before opening her own spice and tea shop in Ventura at the age of 23. During this time her son was born. At the age of two, he was diagnosed as being autistic. Ashley learned how to be a fierce advocate for him and joined forces with Autism Society Ventura where she now serves as president. Ashley sold her business and took a position with the Ventura Chamber of Commerce to have the time to devote to her son's needs. Life wasn't done throwing curves at Ashley. In 2020 she was feeling some health issues of her own. She thought they were stress-related. After a STAT MRI's ended in a diagnosis of Multiple Sclerosis she now had not only to advocate for her son but for herself as well. You will see from listening to Ashley that she is as unstoppable as it gets. She is by any standard the kind of person I am honored to know and I do hope we will hear more from her in the future. About the Guest: Ashley Pope is 33 years old and lives in beautiful Ventura, California with her husband Carlos and their 10-year-old son, Gavin. She is employed by the Ventura Chamber of Commerce as a Membership Development Manager. She feels fortunate to get to work with the business community, including small businesses and non-profit organizations. Ashley is an entrepreneur, having owed a spice and tea store Downtown Ventura for 6 years before selling it, all before the age of 30. During that time, she was acknowledged for being a young business owner, most notably in the Wells Fargo Works national competition and by the National Association of Women Business Owners when she was awarded Young Entrepreneur of the Year in 2015. Ashley is also a passionate volunteer. She has worked countless hours as a volunteer for Autism Society Ventura County- a role that doubles as a hobby! She is currently the President of the organization and has served on the board for 6 years. The projects that bring her the most joy are centered around workforce development, advocacy, changing the local narrative around Autism one family at a time, and obtaining large grants to put on new meaningful projects and programs in Ventura County. Ashley is also a 7 year Rotarian with Rotary Club of Ventura East. In 2015, when her son was 2 years old, he was diagnosed with Autism. This diagnosis rocked her world and sent her family on a quest for services and to understand what this meant for her son. Acceptance wasn't immediate, but it was fast. Ashley became a passionate advocate and began to help other families whenever she could. This quest for more led her to Autism Society Ventura County, where she was able to combine her energy with other advocates for greater impact. She credits the organization with empowering her with the knowledge and experience to be the best mom she can be. By the end of 2016, Ashley was known in her community as a disability advocate. In 2020, Ashley came into another challenge. She had been experiencing some strange medical symptoms that she wrote off as stress induced. She was shocked when STAT MRI's ended in a diagnosis of Multiple Sclerosis. Ashley didn't know much about the condition, only that it was debilitating. She quickly learned that unlike Autism, there wasn't much fun or interesting about progressive multiple sclerosis. She is currently in the process of coming to acceptance of her own limitations and grappling with her sense of self as her ability to do a lot changes. Through her experience with her son, Ashley has learned that the ability to communicate is a gift and is motivated to share her story, even when she feels vulnerable. Ashley loves to read, spend time with her family, and loves her 2 cats Scarlett and Pebbles and her dog Donut. Ways to connect with Ashley: Instagram: VenturawithAshley Facebook: https://www.facebook.com/ashley.pope.10/ About the Host: Michael Hingson is a New York Times best-selling author, international lecturer, and Chief Vision Officer for accessiBe. Michael, blind since birth, survived the 9/11 attacks with the help of his guide dog Roselle. This story is the subject of his best-selling book, Thunder Dog. Michael gives over 100 presentations around the world each year speaking to influential groups such as Exxon Mobile, AT&T, Federal Express, Scripps College, Rutgers University, Children's Hospital, and the American Red Cross just to name a few. He is Ambassador for the National Braille Literacy Campaign for the National Federation of the Blind and also serves as Ambassador for the American Humane Association's 2012 Hero Dog Awards. https://michaelhingson.com https://www.facebook.com/michael.hingson.author.speaker/ https://twitter.com/mhingson https://www.youtube.com/user/mhingson https://www.linkedin.com/in/michaelhingson/ accessiBe Links https://accessibe.com/ https://www.youtube.com/c/accessiBe https://www.linkedin.com/company/accessibe/mycompany/ https://www.facebook.com/accessibe/ Thanks for listening! Thanks so much for listening to our podcast! If you enjoyed this episode and think that others could benefit from listening, please share it using the social media buttons on this page. Do you have some feedback or questions about this episode? Leave a comment in the section below! Subscribe to the podcast If you would like to get automatic updates of new podcast episodes, you can subscribe to the podcast on Apple Podcasts or Stitcher. You can also subscribe in your favorite podcast app. Leave us an Apple Podcasts review Ratings and reviews from our listeners are extremely valuable to us and greatly appreciated. They help our podcast rank higher on Apple Podcasts, which exposes our show to more awesome listeners like you. If you have a minute, please leave an honest review on Apple Podcasts. Transcription Notes Michael Hingson ** 00:00 Access Cast and accessiBe Initiative presents Unstoppable Mindset. The podcast where inclusion, diversity and the unexpected meet. Hi, I'm Michael Hingson, Chief Vision Officer for accessiBe and the author of the number one New York Times bestselling book, Thunder dog, the story of a blind man, his guide dog and the triumph of trust. Thanks for joining me on my podcast as we explore our own blinding fears of inclusion unacceptance and our resistance to change. We will discover the idea that no matter the situation, or the people we encounter, our own fears, and prejudices often are our strongest barriers to moving forward. The unstoppable mindset podcast is sponsored by accessiBe, that's a c c e s s i capital B e. Visit www.accessibe.com to learn how you can make your website accessible for persons with disabilities. And to help make the internet fully inclusive by the year 2025. Glad you dropped by we're happy to meet you and to have you here with us. Michael Hingson ** 01:21 Well, hello once again. And yep, you are absolutely right. This is unstoppable mindset. We're inclusion, diversity in the unexpected meet. And it's always fun when we get to have a lot of all of that kind of stuff on here. I'm your host, Mike hingson. We're really glad you're here with us today. And today we have a guest Ashley Pope, then Ashley would be a person I would describe as an unstoppable mom advocate and she'll tell you all about why that's the case. But that's a good description to start with. Anyway, we've been working on getting this all set up for a while and we finally got it done. And here we are. And Ashley, thank you for coming on. And welcome to unstoppable mindset. Ashley Pope ** 02:03 Thank you so much. I'm so happy to be here with you today. Michael Hingson ** 02:06 And I am not really if you want to get technical everyone totally pleased with Ashley because she lives in Ventura, California, and I wish I were there. But no Victorville is really okay. Ventura is a nice seaside town, and there's a lot of value in being there. And it's a wonderful place and not too far from where I live. So I could get a ride there within a couple of hours or so. So not complaining too much. Right, Ashley? Ashley Pope ** 02:33 That's right, Ventura Great. Michael Hingson ** 02:35 Well, let's start by maybe learning a little bit about kind of the earlier Ashley, you growing up and all that kind of stuff. And we'll, we'll take it from there. Ashley Pope ** 02:44 Yeah. So I grew up right here in Ventura, California, which is about halfway between Santa Barbara and Los Angeles and super sunny, beautiful place to live. And it's a wonderful place to grow up. And I have a brother and a sister and you know, my parents, we all just grew up here and and I think I think the universe all the time for allowing you to grow up and such a gorgeous place with wonderful people. I really don't think there's anywhere better in the world. And then, shortly after high school, I just jumped right into actually working full time before high school even ended. And I just always have had a really strong work ethic and a really big passion for whatever work I was doing. I never expected that I would find myself in disability advocacy, that's for sure. This is where I landed and I'm grateful to be here as well. Michael Hingson ** 03:43 So you didn't go to college? Ashley Pope ** 03:45 No, I did for a little bit. I went to MIT for college. Okay, great. Yeah. And I dropped out. I have I have a short attention span so I knew pretty quickly that college was not my thing. It was really hard for me to sit down and sit still I've always learned better by using my hands and my mind and getting out there and I chose the work route which you know, pros and cons but no regrets at all. Michael Hingson ** 04:14 Well, and that's really the issue isn't that you are you're happy with what you're doing? There are no regrets. You can always do shoulda, coulda, woulda, and what good does it get us anyway? Ashley Pope ** 04:24 Absolutely. I actually bought a business at the age of 23. A retail store in beautiful downtown Ventura. And I consider that to be my college experience. I had it for six years. And there's there's no business experience like that experience, that's for sure. Michael Hingson ** 04:43 And what happened to the business? I sold it. See there you go. So you beat the odds first of all, because they say that typically most startups don't last five years. Not only is it yours last but then you sold it. So you can't do better than that. Unless you wanted to stay in it and there are a lot of reason Since not to necessarily do that, as I'm sure we're gonna discover, but what were you doing? You said you were working even in high school? Ashley Pope ** 05:08 Yeah, I worked at Macy's. So when I was in high school, my parents moved to Sacramento, my dad's job got transferred. And I kind of refused to start new in high school and opted instead to do homeschooling and ended up working full time at Macy's, while homeschooling for a year, and then I moved back to Ventura to graduate, and kept the job. And shortly after graduating high school, I went on to work at LensCrafters, which was a great management experience and really taught me a lot. I think my days at LensCrafters really helped to prepare me for advocacy in a lot of ways it you know, just working with people who have vision impairments, or have medical issues and need the glasses to see it was really enlightening for me honestly, that to think somebody could lose a pair of glasses or break a pair of glasses and then be unable to see the world and maybe not have the accommodations that they needed to pick glasses right away. Rather, it was financial or transportation restraints, just to have somebody kind of be left without resources for maybe a week before they could get in for an appointment. It was really it was enlightening. For sure. It's pretty cool to to witness that. Michael Hingson ** 06:39 It's kind of an off the topic question. But I'm just curious, it sort of pops into my head. How do we get people to recognize that eyesight is not the only game in town, and even if you lose your glasses, it's not the end of the world. Ashley Pope ** 06:52 I mean, I think it is the end of the world in first moments, right? In the first moments, in the first moments, you see, oh my gosh, I can't work, I can't drive. I can't be an effective parent. I can't help my kid with their homework. It's like you have to learn how to deal with what life gives you. But if you only have a week to figure it Michael Hingson ** 07:15 out, oh, yeah, that's not a lot of time. Ashley Pope ** 07:19 But you're absolutely right. I mean, that's one thing I did not learn from LensCrafters. But maybe I learned later down the road, is that these things are not life or death. Right? It's, it's not. It's not the end of the world. You're absolutely right. But it's the end of that person's world when they have a week worth of plans that they can no longer make. It feels like the end of their world. And perhaps that's an issue with America and with the world as it is more than it is the way that those individuals were thinking, Michael Hingson ** 07:54 Yeah, we teach. We teach people so much that I say it's the only game in town and I and I understand why for most people, it really is because that's what they know. The other part about it, and we talked about it here every so often is that somehow we've got to get away from using the term vision impairment, because for visual impairment, because we're not impaired. And people who don't hear well would shoot you if you said they were hearing impaired because they recognize it impaired means you're really comparing it with something, rather than saying, hard of hearing. And likewise, with people who are blind or low vision, that's a much better way to put it than blind or visually impaired visually, we're not different and impaired as also an inappropriate thing. But we're still a long way from getting people to understand that language. And that doesn't help people thinking that it's the end of the world. But I appreciate it. And and the reality is it's an education process. And hopefully over time, it will be something where we'll have better revolution. Ashley Pope ** 08:58 Thank you, Michael, it. It is an educational process. And there's so many, we've we're always changing and always evolving. And that's something I didn't know I do remember prometrics at one point telling me that we should never say blind, right? And it seems like we've gone backwards or gone forwards but like it's like what used to be acceptable for a while was no longer acceptable, such as like person first language. That's another thing with autism. Like you don't say autistic, you say a person with autism. And then now we're going back to know the person that is who they are. That's part of their culture that they want to claim and part of their identity. So now we got to stick. And we always want to be respectful of the language that one wants to use in the language that's culturally appropriate and no, that's super valid. And thank you so much for for sharing. Michael Hingson ** 09:55 Well, in the case of blind for example, and I think there are reasons why optometrists should ophthalmologists think that I'll get to that in a second. But the real issue is that blind and low vision is and or are characteristics. And the issue isn't politically correct or not the issue is accurate and how it really classifies people. And that's why the whole idea of impaired is a problem. From my perspective, the optometrist, you talked about his blind impaired, why is that any different than being blind, you know, a, maybe a better way to put it is that guy's light dependent, and he'd be in a world of hurt if the power suddenly went out in his office, and he didn't have a window to allow sunlight in. But he didn't have a smartphone right close by to be able to turn it on for a flashlight. And most people in the world are like dependent. And that's all they know, that I don't expect everyone to necessarily get to the point up front where they're experts and won't panic. But they sure also ought not to assume that just because some people aren't like them, that we're not just as capable. And of course, that gets back to the whole issue of disability does not mean lack of ability, which is something you understand very well. Absolutely. So you sold your business. Cool. That was great. What was your business? Ashley Pope ** 11:26 It was a spice and tea store, downtown Ventura, and it's very much still there and the new owners are not new anymore. It's been four years. They are absolutely amazing. The store is called spice topia. And it's right on the 500 block of Main Street, downtown Ventura, and I love the tan family. If you drop in, you should definitely spend a lot of money and and visit the family. Michael Hingson ** 11:52 Well, only we'll go with you. We'll have to get to Venter and do that. I've been a great fan of some Well, vibrant British teas, but I like green tea and other other teas as well. I've never been the coffee drinker and I don't know why. But I've always been since I started drinking hot drinks more of a tea drinker. Of course, I can always be spoiled with hot chocolate, but that's another story. Ashley Pope ** 12:15 Same same. I love chocolate bars. I'm not so much of a coffee drinker anymore, either. Michael Hingson ** 12:21 Nothing wrong with hot chocolate. Ashley Pope ** 12:24 Especially with whipped cream. Yep. Absolutely. Do it. Michael Hingson ** 12:28 Make it with milk? Yep. We, my wife and I in the winter would get Starbucks cocoa from Costco. And we would make it with milk never water. And so always tastes great. Yeah, spoiled me. I might just have to have some anyway today just because. Well, that comes later. But meanwhile, so what did you do after you sold the business? Ashley Pope ** 12:59 So this is another point when I had a business, I always had another job kind of outside of the business. Because as you said, small business is hard. And retail is hard. So that was always kind of a side project for me, that I had for a long time. When I went into business, my son was just about a year old. And within another two years he was diagnosed with autism. And so I tried to kind of let go of the job that I had and went to go work my retail store and then ended up with a different kind of job sticking with the optometry ophthalmology field. I would do outside sales for LASIK and cataract surgeons. And yeah, stick with the field stick with what I knew. And then the Chamber of Commerce here in Ventura was hirings. Oh, I've actually worked for the chamber for about seven years. So there was some overlap between selling my business and the time that I worked for the chamber. The time came in 2019, I really was just beginning to feel the squeeze of having a child with special needs, doing my volunteer work that I love to do, and of course, having a job and a business. So something had to go. And I really took a good hard look and thought, what do I want to do? Do I want to quit my job? Do I want to stay in the business? And I ended up deciding to go ahead and sell the business. And that was a really great decision for me. A very wise decision in terms of especially not knowing what was coming next, which I know we're gonna get to about what less than a year after selling I was diagnosed with multiple sclerosis. And so that was really telling why I was having some of the issues that I was having, focusing, holding conversations with fatigue EEG, all of these symptoms that I had been having just in case I was overstressed overworked, which I was, but not really answered some of those questions, and I was really grateful that I made the decision that left me with health insurance versus the one that maybe wouldn't have. So. Michael Hingson ** 15:16 So the job that you had at that time was the Optima logical one or the optical one or what? No, with the chamber with the chamber. Okay, great. Yeah. So you got health insurance. So you had two different sets of challenges, because clearly MS is not anywhere near the same kinds of issues as as autism. And now suddenly, you had to deal with both. Is there a husband in the picture? Ashley Pope ** 15:39 There is? Yeah, my husband, my son's dad, he is a stay at home dad, actually, to this day, really supportive also than I assume? Yeah, he's really supportive, and definitely the primary caregiver for my son being that I was working. So that's it. It's been great just being able to lean on him. Michael Hingson ** 16:03 And, and he does that, which is so cool. Because he cares enough to do that. And so he's able to deal with your son and, and you when necessary. Oh, absolutely. I see you a lot on a lot of different ways. But with the MS and all that, does your son go to school? Ashley Pope ** 16:23 He does. So he goes to a special education program that's been a typical school, he does have a inclusion where he sometimes goes into the general education classrooms. And he goes to public school. Michael Hingson ** 16:38 How's he doing? Ashley Pope ** 16:39 He's doing great. My son is so awesome. He's really positive. He's really smart. He's really happy. He has a hard time with language, both understanding complex instructions or complex ideas even. And then also verbalizing, complex feelings, emotions, he talks a little bit but mostly about, like his needs and his wants. But I really learned that there's a lot of different ways to communicate. And he's, he's a happy kid. So we're really grateful for that. Does he read? He is super good with reading? He does. He doesn't read so much. Books. And the comprehension is still a challenge. But he definitely reads words and is really good with spelling. That's he has been fascinated with the alphabet, since he was like, nine months old. He's been super drawn to numbers and letters and colors and shapes. And that's actually, I think, a pretty common thing with autism. Michael Hingson ** 17:50 Well, that's cool. Does, does he? Have you ever tried to explore the concept of listening to audiobooks? Or is his listening comprehension just not there yet. Ashley Pope ** 18:02 He's never really shown interest. He's just barely starting to show interest in cartoons, which is funny, because, you know, so many parents are like, Oh, too much screen time for the kids, like, you know, you don't want him glued to the TV all day. And for us, we're like, thrilled that he wants to watch cartoons and you can kind of like, maintain a focus on it. I know so many people who learn English through watching cartoons, and maybe you know, grew up on learning Spanish only. And were in households that didn't speak English at all. And were able to pick up English through cartoons. So I'm a big believer that this can be a positive thing for him. And it gives me hope, also, that he's interested in the stories being told and in the characters. So I'm interested to see where that will land. Michael Hingson ** 18:53 Well, so of course, the issue is you're getting something out of it. And clearly, you can see that so that's a really positive thing. Needless to say. Absolutely. Yeah. So he, he watched his cartoons to see what kind of games does he play? Ashley Pope ** 19:10 Plays, you know, it's he, he likes to do things his own way. So you can usually find him like jumping on the trampoline, he likes to go for walks, he runs around on the beach, and terms of games. He's just not into it. And we try to pull him into like, you know, our space and get him to engage in these different ways. He loves doing LEGO sets, which is really fun. The booklets like, really, really well, he does better than I do. I'll be like trying to help him and put something on backwards and he's like, no, no, like, he'll like take it from me and fix it. So it kind of comes back to that whole, you know, shapes, numbers, colors, letters thing he's really drawn to what's concrete. Which is interesting because for me, that's so not who I am as a person. So it's been fun to learn alongside him and watch the way that he learns. Just because it's so interesting and different from the way that I learned. Michael Hingson ** 20:18 Well, clearly, there is a lot of awareness there. And that's probably the most important thing. So you may not know just what's going on in that mind. But there's something that that is going on. And he's aware of his surroundings. And I wish more people were aware of their surroundings in so many ways. Ashley Pope ** 20:38 Yeah, he'll pick out like, the tiniest little thing and hyper focus on like, one, you know, little tiny toy or one little thing in the carpet, or whatever it might be. In so many ways, it's like he'll he'll fully get immersed in one little part of his day. And it's a really beautiful thing to watch that at attention. And that focus is really rare. Michael Hingson ** 21:11 You've talked about autism or autistic awareness, as opposed to acceptance. Tell us about that. Ashley Pope ** 21:17 Yeah, so autism acceptance is a term that's been used for decades, or autism awareness, I'm sorry. So autism awareness is basically like, what is autism? What are the first signs that you should reach out for help if you see these, you know, first things not talking, not smiling, not engaging, no eye contact, they have like this big long list of things for parents. And to know those things is to be aware. So society pushed that for a really long time, autism awareness, autism awareness. And just in the last maybe five years, Autism Society of America, as well as Autism Society of Ventura County, and several other organizations have said, Okay, we've kind of met awareness, people know, what is autism, people know someone with autism. People have heard the word autism. So what does it mean? What's the next step? And autism acceptance is really not only being aware of what autism is, but being accepting of who the unique individuals are, who have autism, and also taking a good look at how does our world work? And how do we make sure that it works for these populations? So for instance, in like workforce training, and education and inclusion, pretty much from birth to end of life? How do we build a world that is more inclusive? And that has been the focus now on acceptance more than awareness? Michael Hingson ** 23:02 Yeah, it makes sense. And we'll know when there's true acceptance when people recognize that just because someone may be happens to be autistic, that doesn't make them less of a person, it means they're going to do things in a significantly different way. But doesn't mean they're less. Ashley Pope ** 23:23 Yes, absolutely. That's the goal. We are noticing the differences and honoring the differences, and accommodating the differences when necessary. But that we're recognizing that they are just as much human and have just as much right to find their happiness and passions in the world. We're not just creating cookie cutter programs for kids that are so not cookie cutter. And we're definitely not pushing adults into cookie cutter dogs, or cookie cutter programs. And we honor the diversity of everyone else. We hope that we can honor that diversity across the autism spectrum as well. Michael Hingson ** 24:06 Do we really know what causes autism? Ashley Pope ** 24:09 We don't. We don't know what the causes are they they, you know, some genetic factor for sure. environmental factor for sure. But they still haven't identified what exactly causes autism. And one thing that I love most. And what really drew me to Autism Society, is that we really don't talk or work on causes or cures at all. We only focus on providing programs and making the world a better place. As a mom. I remember getting that diagnosis and seeing so many organizations that are talking about you know, finding a cure or figuring out what the cause is so that we can eliminate it and just being like, well, that doesn't really help me. Now, it doesn't help my son now like we don't we're not trying to You know, change, that he has autism, it's part of who he is, in a sense, even very early on, I knew like, I don't want to take his wonder or his joy away from him, like, I'm not trying to make him not jump in spin. That's clearly what's making him happy. But I also just want to help him whatever that looks like. And so I was really attracted to an organization that uses their donations, to help those who are already living versus looking at 20 years ahead, to see what they can figure out about causes or cures. And there's a lot of controversy there as well around even finding a cure for autism, because more and more we're learning that it's, that is the genetic makeup, it's a different wiring of the brain, it's a different way of thinking, and it's not wrong, it's not something to be fixed, it's something to be accommodated. So there's a lot of that feeling out there as well that focusing on a cure or a cause is perhaps not the right focus for the time. Michael Hingson ** 26:10 Well, or using the words we use a little while ago, or you use a little while ago accepted. There's nothing wrong with acceptance. Ashley Pope ** 26:18 Yeah. It's trying to convince someone that you are accepting, when in the next breath, you are looking to fix what you feel is broken. So Michael Hingson ** 26:30 that's the issue what you feel is broken. Yeah. Which is, which is all together a different issue. What do you want parents and other people to know about having a child with autism, you must have life lessons, that would probably be valuable for people to hear about. Ashley Pope ** 26:50 Yeah, for first getting a diagnosis, what I would tell parents is, it's definitely not the end of the world, that there are a lot of positives that can come from, even from the diagnosis, this child is still the same child, and they still have just as much to offer the world and your family as they did, before they got that diagnosis, or the moment they were born, or the moment you dreamed them up. There is still just as much value there. And I would also say that, you know, cry if you need to cry, but then wake up the next day and get to work. Because there's a lot to do, there's a lot of services to find, there's a lot to learn. And the longer you take to process, whatever feelings you need to process, whatever your your grief process looks like, quicker you can get through it. And the faster you can get to work, the better off your child will be. And the more likely they are to be able to be independent to some capacity in this world. So that's a really important message. And then for the rest of the world, I would just say that individuals with autism do deserve the same access and the same experiences. It's shocking, what we sometimes hear, right? In terms of like, well, that program exists, like isn't that enough? Or these services in the community are available? We have one inclusive Park, is that not enough? Why do you need them all to be inclusive? It's like, No, it's not enough, we deserve the same access. And so I will continue to fight those fights, not necessarily for you to park just one idea or one example. But in every area everywhere should be accessible. And the idea that we put any type of limitations on a child or on a person due to a diagnosis or disability is just not okay. So that's it gets. Michael Hingson ** 29:03 It gets back to what we talked about earlier, blindness being the end of the world or not, and it doesn't matter whether it's being blind or have been being autistic or whatever. It is something that we've got to get to the point of saying get over it. Where's the real problem? The real problem is us who think there's a problem rather than there necessarily really being a problem. Ashley Pope ** 29:29 The way I put it is the problem is with the world. There's nothing wrong with my son. The problem is with what the world has available for or does not have available for the way that the world perceives, or the way the world thinks about my son. That's the problem. It's not him. And so I think that's a really important piece for people to recognize is that it's the world that falls short never, never ever child and Never the person with a disability. Michael Hingson ** 30:04 Yeah, and the reality is that we can get over it. And we can move forward. So well, let's let's talk about Gavin a little bit more. So he's 10. What do you expect will be Gavin's future? At some point, will he go into the workforce and have a job? You know, given his level of autism was I'm not going to call it a disability, because it's no more a disability than being able to see as a disability, but, but he is autistic. What, what will that mean in terms of him being able to ever work or be on his own and so on? Ashley Pope ** 30:47 Here, as the world would say, and this is another term, not, we don't really use, but he does have a lot of needs. And so sometimes in the autism community, we'll hear, Well, is he low functioning, or is he high functioning, or somewhere in the middle, and that is another category of words that we want to kind of let go of using because just because somebody is high functioning doesn't mean that they don't really struggle with things related to their autism. And just because somebody is low functioning, doesn't mean they don't have anything to offer the world. And that the way that we perceive low functioning and high functioning are not, they mean, really very little to like, the actual experience that that person is having. So we've tried to get away from using that language. And my son does have a lot of needs, and he will hopefully be able to work if that's what he is driven to do. He is really interested in things that I think would be good qualities to have as an employee. He's super happy. He's really good at like keeping things organized and clean, you'd make a great merchandiser, for instance, however, he is easily distracted, and he's not really so into direction at this point in his life. He's also 10. So you never know. So to answer that question, I don't really know, I guess it could be anywhere between having a day program or volunteer opportunities up to being like, a legal engineer, I don't know, could be anywhere. So we're not so sure. Um, fortunately, he has a lot of family support. And we've gotten a lot of the supports and systems in place for him, so that he will be okay financially, and with people around him that care for him, he will never be fully independent, which is hard to say or think about. But that's just the reality of it. And a lot of you know, a lot of people in this world won't. So how are we as society, protecting the interests and the rights and the safety of those amongst us who will never be fully independent, or independent, even partially independent, they'll always need someone Michael Hingson ** 33:27 kind of almost really submit that most all of us really need someone, and that none of us are totally independent. Probably some people would disagree. But the reality is that we all are interdependent on each other in so many ways, and I don't see a problem with that. Ashley Pope ** 33:45 Yeah. I hear you. I think, obviously, there's levels and you're right. Everybody's independent, in some sense, but But yeah, it's dependents will be a little bit more Michael Hingson ** 34:01 payments will be a little bit more than, than a lot of people and so on. You know, but he may end up being a great card shark in Las Vegas. We'll see. Ashley Pope ** 34:10 That's right. You never know, either. Maybe Michael Hingson ** 34:12 they'll be supporting you. Yeah, Ashley Pope ** 34:14 it's very true. Michael Hingson ** 34:16 Does he have any siblings? Ashley Pope ** 34:19 He does not. So. But no siblings. He's, Michael Hingson ** 34:23 he's, he's a lot to concentrate on. Right? Yeah. He and her husband for you? Ashley Pope ** 34:28 Yes. That's enough for me. Yeah, that's Michael Hingson ** 34:32 a lot of work all the way around. Or your husband has you and he and Gavin to concentrate on and that's a lot for him too. So that is my wife. My wife and I chose not to have kids. We chose to spoil nieces and nephews. So at the end of the day, we could ship them off to home. Ashley Pope ** 34:49 Nice, Michael Hingson ** 34:50 worked out well. Yes, it did. Well, we valued each other we valued our togetherness. She was in a wheelchair. And so as I always told people she read, I pushed worked out really well. And so we work together, we relied on each other. And that's, that's as good as it could possibly be as well. So I appreciate though the the fact that we all do happen to be interdependent in one way or another. Absolutely, which is pretty cool. Ashley Pope ** 35:23 It is really cool. Michael Hingson ** 35:25 Well, so for you. What, when? When are you when you discover a parent who has encountered autism? And we've talked some about that, but do you have any other advice or any other kinds of words of wisdom that you want to pass on for parents to think about, Ashley Pope ** 35:48 um, I sometimes come across parents who won't want to tell their child that they have autism. And I think that that's cruel. For lack of a better word, we'll hear that these kids are having a hard time socially, emotionally, maybe with learning. And parents will just be like, oh, you know, I don't, I don't want to give them the label. I don't want them to, you know, feel like they're living with this or under this. Yeah. And we oftentimes hear from adults with autism, that it answers so many questions to have the diagnosis. And so I think that being able to give them the gift of knowing as early as possible, and have them grow up around the word and around being proud of having a different mind, and aware that their mind is different. And there, they may have some struggles, like they may learn a little bit different, or they might have some social issues or difficulties or differences. But that the family loves them and that they are proud of who they are. And that autism is something to be proud of. Because in a lot of ways, it's also a superpower. And look at all the things that you're great at. That is a better approach, and just not addressing it at all, can be really hurtful Michael Hingson ** 37:21 to that whole thing of living with autism or whatever, it's the same thing about what we were talking about with blindness or any other kind of so called disability. The reality is we've got to get beyond these words that really are only hurtful and not accurate anyway. Ashley Pope ** 37:39 Yeah, it's, it's a gift to be able to grow up knowing and to find your pride and sense of self, within the life that you have, you're not going to have another one, it's not going to change, you know that you're not going to one day wake up and not have autism. So just live with it. And you loving that about your child empowers them to love themselves, regardless of any difficulties that they may have. Michael Hingson ** 38:09 And they're going to know that you love them. And if you don't, they're going to know that. It's it's something that so often we don't understand. Children and and other people in general, really observe instinctively as much as anything else. And they know when you're blowing smoke or when you're genuine, whoever you are, and whatever you do. And I, and it's, you know, I learned it a long time ago, I have been very much involved in sales. And I learned a long time ago in sales. They know when you're faking it, they know when you're telling the truth. And you can try to pull the wool over people's eyes. But the reality is, it doesn't work. People really can sense it. I was interviewing someone actually on a recent episode, who was talking about self confidence, and we talked about confidence and arrogance. And one of the points that he made was with arrogance, it's usually because there's an insecurity and you can bluster and, and do all sorts of things. But the reality is, if you're truly confident in yourself and what you're doing and so on, that shines through and people can tell the difference. Ashley Pope ** 39:27 Very true. Michael Hingson ** 39:29 And so love is extremely important. And I'm I'm really glad to hear that you can can really support that in the you guys are doing that and Gavin's gonna certainly appreciate it and give it back in return and that's is important as anything else. Ashley Pope ** 39:46 Yes, he is so happy and and I think lucky. Just how much support he has. And we don't put him in situations where We don't feel like he is fully accepted and embraced and loved. Ever. So if there was a teacher that I felt was not fit, then we would find a new one. It's like those types of situations, because we can't. I want him to be happy and to live that fullest life. And in order to do that he needs to be around people who believe that he can and that he's worth that, Michael Hingson ** 40:25 who believe in Him. Uh huh. Well, so I want to talk more about you in terms of your diagnosis and so on. But first, what do you do for the chamber, Ashley Pope ** 40:39 I do membership development. So I meet with different businesses and organizations and people around the community and bring them into the chamber. I also do a lot of the events work, so help to organize events. It's really awesome to be able to connect with the business community on a really deep level. It's a really supportive community here in Ventura. We have a ton of nonprofits who do really great work, and the business community really comes out and supports them. So I'm really in a position to uncover unmet need, and also to find organizations and people who can help to meet that need. And it's one of the things I'm most grateful for when it comes to my job. Oh, Michael Hingson ** 41:25 percentage wise, how many businesses are in the chamber? And when not only in winter? But typically speaking? How does that work? Do most businesses join their local chambers? Ashley Pope ** 41:38 So our chamber has 700 businesses as members, we represent over 25,000 employees. So it's a really big network. Every chamber is different. They're all operated independently, they all have different initiatives, different boards of directors. So Chamber of Commerce in one city could be doing completely different things than a chamber of commerce. And another one. So yeah, I mean, Fincher is is fantastic. And chambers in general, do networking, business advocacy, it just kind of depends city to city. I love today, a lot of small businesses join. It's hard to give like a percentage or, yeah, Michael Hingson ** 42:22 yeah, I was just curious. I didn't know whether that was even an answerable question. Because unless you have some real way to track every single business, it's it's kind of hard to tell. Ashley Pope ** 42:33 Yeah. And there's a lot of businesses that do. Like, if you looked at a business license list, you would see a lot of businesses that pull like a one day permit or do business in the city, but aren't actually like based in the city, and so no different than hard to measure for sure. Michael Hingson ** 42:51 In our post COVID world or sort of post COVID world do you find there are a lot more home based businesses and there used to be Ashley Pope ** 43:02 a lot of businesses have gone virtual. Although that is slowly but surely, people are getting back into the offices. So back to the physical location, we saw it with big tech first, a lot of big businesses called their people back. And now there's data coming out around productivity, not in the favor of the work from home people. So I think we'll continue to see that those commercial spaces will fill back up. But that will always be able to do some things hybrid and have zoom meetings. And definitely people are working from home when they're sick now, which is a nice change because people used to go to work sick. And now that's kind of unimaginable, you wouldn't go to work sick, that's the worst thing to do ever. So definitely some positive change there. They will be really interesting to see what happens in the next 510 years. If the work from home thing sticks at all. Michael Hingson ** 44:04 I hope it sort of sticks I think what what you just said is true that there there's this whole work life balance but even in addition to that there's virtual verse is in person life balance and the fact is that there's there's value in letting people do some of their work at home. It's great to get away from the office and the inherent pressures that that provides and do some of your work at home. My job is pretty much all at home except for a few times and when I go speak places of course, and I love to go speak in person because I get to interact with audiences even in ways that I can't virtually but between that and then working with accessibly I actually get to go to accessory in Israel this year, which will be fun. And I go to a couple of conventions a year but the I'm used to working at home, and a lot of my sales life, I did remote offices. So sometimes I was at home and sometimes I was in the office. So I kind of got trained to be able to do it and be disciplined to work at home, which is not something that a lot of people are totally used to yet, but I hope that they get there and that they recognize that there's value in having a little bit of both. Ashley Pope ** 45:24 I hope so too. I really hope that for our community and for America, especially we're known as workaholics and and not to take enough time, at home or enough time to self. On one hand, the ability to work from home, I think causes people to continue to work when they're done working at the office. But we just have to find the balance there. And we have to be able to maintain some of the positive that came out of COVID as negative as it was there was a silver lining there. Yeah. We kind of toggle back and forth on being able to maintain that as a society or not. And I know for sure in Ventura, but I think that's been kind of a worldwide struggle of do we want our employees to be able to work from home a day, a week or five days a week? Or do we want everybody back in the office? And when do we want things to go back to the way that they were. And every business has different needs. And every manager manager is different, but it's definitely still a demand. This next generation Gen Z, I believe we're calling them they are not going to go work in any setting for 40 hours a week. So there's that generation that's going to change things, and a lot of ways, but definitely the workforce, they're not willing to work. Eight to fives like we were. So that's Michael Hingson ** 46:57 well, and the reality is that normal will, you know, people can talk about getting back to the way we were but normal will never be the same again. And there have been there are, there's always change. There are times in our history where there have been quantum sudden changes. I mean, September 11 was one which of course I'm very familiar with, but the pandemic is another one and there have been others that are dramatic changes, normal will never be the same again. And there's nothing wrong with not trying to get back to the way everything was before. Because if we do that, then we're going to play in forget what we learned. And so we don't want to do that. Ashley Pope ** 47:42 No, we don't want to do that. Michael Hingson ** 47:46 So you had your own diagnosis, you talked about Multiple Sclerosis, and so on. How did you're learning to be an advocate for Gavin, and all that you learned about Gavin and his experiences and adventures? How did all that help you? Because now suddenly, it hits even closer to home for you? Ashley Pope ** 48:09 Yeah, it was definitely a mind switch. I learned so much through advocating for my son. So being able to immediately know, okay, like I can get through this. I've been through other hard things. And I just need to know what's out there. And I need to find the resources and absorb all of the information that I can and find people who can help. And I'll be okay. So that was kind of my initial thought I immediately reached out to the Multiple Sclerosis Society thinking okay, well, if Autism Society has gotten me this far, breastfeed, MS society that can help as well. And we did there was a lot of help there. There's not a lot of answers with a mess, there's more questions than there are answers. And that has been one of the most difficult things for me. I do find peace through information and through knowing what is going to happen knowing what's gonna come next. And that really went out the window with Ms. I would say with my son, there's this constant belief that things are going to improve and they have improved and they'll continue to improve will continue to learn and older and learn new skills and we can be there for him and with him. And a mess is different, rather than things are going to get better. It's kind of knowing that things are going to get I don't want to say well worse but it is a progressive, debilitating conditions. So Michael Hingson ** 49:56 unless, unless of course somebody finds a way to birsa Cure, Ashley Pope ** 50:00 yes, a cure. And that is part of the mission of the MS Society is to find a cure and restore what's been lost, which is awesome. So yes, fingers crossed, but I do have to prepare for more needs down the line. And already in the last few years, I've lost some strength in my hand, and in my right hand and my left foot. So it's just becoming, finding a different level of acceptance. So in a lot of ways, I did it, I don't think I really went through the same. I call it a grief process, I feel like there should be a better word because you don't you grieve when somebody dies. And as we've already talked about, nobody's dying. So but it is that same kind of process, right? Where like, okay, things have just changed, I'm kind of going to grieve things as they are, or denial, or denial, right. And he goes through like the same process of like denial, and, you know, the bargaining and anger or whatever, whatever. So, of course, I went through a little bit of that with my son early on. But I felt like with that mess, it was just like, so much easier to just get straight to acceptance. And I talked to a therapist, and I was like, I know, this sounds crazy, but I think I just like, the whole process. And I think it's because fairly recently in the last decade, I already went through something that's it's not similar, but it's still similar in a way like, they're, they're not connected, but I feel like I was just immediately able to be like, okay, Ms. Like, what is it? How do we deal with it and what comes next, and I just kind of skipped, like, all of these stages of grief or whatever we want to call it these stages that people usually go through when they get news like this. And that I think, was interesting. And I do think it was directly related to the work that I've already done around accepting things as they come being okay with not having all the information. The fact that I'll always be an advocate for my son, but that job is never going to be able to retire from that job. Not that I would ever want to, but it made it easier in a way to find the information and just to move through to where I can have an impact. And I was ready to share pretty early on. I didn't make it super public. But because I was on immunosuppressants during COVID I wasn't shy about telling people like hey, you know, if you're if you feel sick at all, or if you haven't been vaccinated, these are my limitations in that I just started on immunosuppressants. So I did feel really vulnerable in those early days, especially before I knew what immunosuppressants meant for me and during a pandemic. Michael Hingson ** 53:01 Did you get vaccinated and all that stuff? Ashley Pope ** 53:03 I did. But with the, the drug that I'm on, it actually greatly reduces the effectiveness of the COVID vaccination, it kills the B cells like that you're the COVID vaccine attaches to to get to its destination. I'm not a scientist, so forgive me if I said that wrong. But basically, I didn't have the cells to carry the vaccine. So I did get it. And then off the boosters, and I, you know, I did all the things, but it was very clear, like, that may have been just basically a shot of water for you, and may or may not have actually worked for you. So I was nervous about dying, because I feel like it's fair to be. But I think, yeah, it just it really did change the way that I think about it, these processes that we go through because I didn't handle it so different at time. And it also the vulnerability, I think is the biggest thing for me that I had to deal with. That was different from my son. Because as a mama bear, you know, you defend your kid at all costs, you get out there and you make things happen for your kid. But when it came to advocating for myself, I found that I would kind of lose the words when it would come time to talk to the doctor, I found myself kind of been like, oh, you know, it's not these things are not that bad or kind of stretching. Like if they'd asked me a question like, how can you do this? I would so want to say like, yeah, I can do that I can do this and that and this hasn't changed that much and just kind of predict things in a positive light. So I kind of had to start thinking like I have to advocate for myself as if I'm advocating for somebody else because it's really hard for me to say that I need help. Michael Hingson ** 55:00 The same process does fit. We, I was in New York on March 5, of 2020, to do a speech and flew back early on March 6, because of COVID. And also, my wife had been diagnosed with rheumatoid arthritis in 2017. So she was on medications to suppress part of her immune system to help deflect or deal with the RA. So we immediately went into lockdown, and just stayed home. And, and then when the vaccinations when the vaccines came out, we started taking them. And in fact, I, we both were all up to date. And then I learned that being over 65 I could get another vaccination recently. In fact, I could have gone in late February, but I didn't know it then. But anyway, I just went in today for another vaccination, because I'm going to be doing some traveling and I'm going to do everything I can to make sure that I can be as protected as possible. And I recognize that the vaccine doesn't keep you from getting COVID. But it certainly mitigates it a lot. So my intention is not to get it. I also don't mind wearing masks. I've been on airplanes for long periods of time with a mask doesn't bother me. And it doesn't seem to bother my guide, dog Alamo. He doesn't look at me differently, because I happen to wear a mask, so I'm not going to worry. Yeah. But you know, the fact of the matter is that it's something that is part of our world. And there's nothing wrong with it. Ashley Pope ** 56:43 Yeah, I may be on the same drug as your wife. Actually. They're both autoimmune conditions. So she took her brinsea Oh, no, I'm mine for Tuckson. So but probably still do the same things. amatory processes similar. Yes, different different parts of the body, tissues, whatever. Michael Hingson ** 57:03 Same concept, in a lot of ways. Well, so obviously, you have a disease that's very progressive, and I do hope that we find cures for that and other things, or, or at least things to improve it for you as time goes on. But how for you? How has your own diagnosis really affected? How you deal with being an advocate, and how you encourage others to advocate for themselves? You've I think you've hit on some of that. But if you want to summarize, you know, you're, you're now having to be a double advocate, if you will, how is your own diagnosis help with that? Ashley Pope ** 57:46 Yeah, I think the vulnerability has been good for me, in a sense, I don't think I've ever truly felt vulnerable in my life. Until I got my diagnosis, even through my son's diagnosis, I always have been like that I can handle it, I can handle it, I'll do it. I'll make it happen type of person. And feeling firsthand, like things need to change so that I can live a fulfilling life is a much different place to come from then, even when you're advocating for your own kid. There's a sense of, it's probably, I would think how someone feels when they have a child with special needs. And there they are ending. Like nearing the end of their own life. They probably feel like oh my gosh, who's gonna protect my, my kid, if I can't, and I know that a lot of parents feel that as they age. But this was my first experience with like, oh, I have something that can impact my ability to do what I want to do in my life. And it just made me more I think sensitive, and I have a lot more empathy for people and their unique situations now, because it's a situation that I never could have imagined myself in until I found myself in it. Michael Hingson ** 59:21 Yeah. What do you want people to know about? Somebody who has a progressive, debilitating diagnosis? How do you? What do you want people to think about that? And what would you like them to do? Ashley Pope ** 59:37 I see. A lot of people don't know how to respond. Social relationships can become a little bit strained. Because things change in your ability. Like in my case, my ability to say yes to everything. I really had to stop saying yes, which I should have stopped doing a long time ago. But I'm definitely like I've said a couple of times there. In this conversation, I'm a doer. And I had to start saying like, No, I can't, I can't take that on, I really need to prioritize that I'm going to prioritize. And there have been some people in my life who didn't like that so much, or felt that like, I was changing, which I have changed. Obviously, these situations have changed who I am a little bit as we should, I would just say, just be a friend. And don't be afraid to ask how somebody is doing. Don't stop checking in and just, you know, do what you would want somebody to do for you in that situation, which is not to disengage. And then general public. I would say that one in four adults in their lifetime will have a disability. So when you vote, and when you advocate for things to be a particular way, keep in mind that that could be you or someone that you love, that has some kind of condition or extra need. And so we should always take care of each other and consider that things should be accessible to all once again, kind of circling back to that, you know, we can we can do so much better with our resources in this country. And it's rarely the wrong decision when it allows more people access, whatever, whatever it is that we're looking at, that's just a very general statement. But if you're looking at opening the world to more humans who live on it, then that's probably the way to go. Because it's just the right thing to do. Michael Hingson ** 1:01:53 And I think the most important thing you said is be a friend, there's nothing wrong with different. There shouldn't be, even if the different is something that maybe you've been taught is a bad thing. Is it really? And yeah, Multiple Sclerosis is progressive right now. But we've seen so many modern kinds of progresses in so many ways. Who knows, and autism the same thing, or blindness or even being a politician? I'm sure there's a cure for that. But I haven't found that one yet, either. So that's another story. But the bottom line is that, in reality, we're all different. And you're right. 25% have what's considered a typical disability, although I've made the case before that everyone has a disability who lives on this planet. And for most people, it's like dependents. But you know, the bottom line is that we all have different challenges. And we all by the way, have gifts that we get to use, if allowed the opportunity. And that's the most important thing. And I'm really excited about hearing and having had the opportunity to hear all the things that that you do and get to do. So what are you going to write a book about all this? Ashley Pope ** 1:03:09 You know, that was something that I was actually in the process of writing a book when I was diagnosed with autism. And I set it aside, and I just was like, so everything changed. In that moment, I have written quite a bit around diagnosis and accepting of diagnosis and how to be a friend in diagnosis. Rather, it's been a friend to, you know, parent who has a newly diagnosed child, or what that looks like mostly around autism, because that's my experience. And then I had this experience, and I really just had to set it aside and kind of find my, my opinion, and my, my thoughts. But who knows, maybe down the line right now, I'm just trying to juggle everything I juggle. But we'll see, you know, you never know, they may, Michael Hingson ** 1:04:05 you may find that sitting down and writing about some of it will be a help to you. And you now clearly have a whole new dimension that you can add to it, I would think it'd be very powerful, which isn't to say just drop everything and do it. But you might certainly sit down and continue to write thoughts because those then that will help you. I know for me, people have asked if I've ever gone to therapy after September 11. And my response is I hadn't but I started getting requests for television and radio and newspaper interviews and so on and chose to accept those if it would help people move on from September 11. And I got to teach people about blindness and guide dogs and all that. And I've realized over the years that literally going through hundreds of those and talking about September 11 Being asked the dumbest and the most intelligent questions, was invaluable at learning to deal with it, and to talk about it, and I wouldn't trade those experiences for anything. And so it is, you know, I do know that writing is a valuable thing. You know, we wrote thunder dog, which I actually started in 2002. And it took over eight years to complete. But right from the beginning, I started writing a lot of my thoughts, and that was helpful. So even just writing things down, although you may not ready to be ready to put them in a book might be helpful. Ashley Pope ** 1:05:33 Yes, absolutely. Or, you know, there's also like voice recording and just getting your thoughts out, I think is really important. So I am a big proponent of therapy and talking and learning, right learning and sharing, I find a lot of peace and volunteering and giving back and talking to other parents and giving people resources. And just learning obviously, even today, it's been a learning experience. I've learned something new about you know, your, your experience, and it's, it's all empowering. Michael Hingson ** 1:06:15 It is and, and you, like all of us can choose how we deal with our gifts and what we know and what we do and what we use. And so I'm sure it's all gonna work out well for you. And I'm really glad that we had the chance to do this. If people want to talk with you, is there any way they can reach out to you or interact with you? 1:06:36 Sure, I would say let's enact first by email. And the email I will give is my Autism Society email. It's Ashley a s h l e y at autism ventura.org. That's a s h l e y autism a u t i s m Ventura, v e n t u r a.org. 1:06:58 And Ventura really means in parentheses hingsons jealous. But that's another story. That's great. Ashley Pope ** 1:07:05 If anybody is it, is it it's a fantastic place and also a good place to live. It's a good place to live for people with autism because there's great services California in general, has more than a lot of other states. And a mess wise now I'm like, sorry, sorry, family, I can't go visit you. Unless it's less than 87 or 87 degrees, it's probably pushing it like 85 degrees. But I've always been so spoiled here in Ventura, because it's like, we pretty much live between 65 and 73. Like, doesn't change much from there. That's where this town's is all year long. So really good for somebody with an autoimmune condition for sure. 1:07:49 There you go. Well, I want to thank you for being here. And I want to thank you for listening. So if any of you would like to chat with us about this, please feel free to email me. You can reach me at Michaelhi, m i c h a e l h i at accessibe A C C E S S I B E.com. Or go to our podcast page www dot Michael Hingson m i c h a e l h i n g s o n.com/podcast. But wherever you're listening, please give us
Elijah Keyes' interest in estate planning and special needs began as a child where he saw the effects of long-term illness in his household. He gained an appreciation of the effects of physical and mental illnesses and how they affect families and communities. Ever since becoming an attorney, Elijah has worked exclusively in the areas of estate planning, special needs, elder law, and tax.Elijah is recognized as a Certified Specialist in Estate Planning, Trust, and Probate Law by the State Bar of California Board of Legal Specialization. Elijah is also a member of the J. Rueben Clark Law Society, the Foundation Fighting Blindness, and the Multiple Sclerosis Society.Elijah is a former professor of law at Golden Gate University and frequently speaks to attorneys and community groups on a range of issues related to special needs trusts, estate planning, trust administration, and probate.Elijah lives in Milpitas, California with his wife and two children.Connect with ElijahWebsite: www.keyeslawgroup.comLinkedIn: https://www.linkedin.com/in/elijahkeyes/General Info:Are you looking for digital marketing help for your law firm? Are you currently running a few campaigns, but are not getting the results you were hoping for?If you are nodding yes to both questions, check out these case studies of some killer results we have gotten for law firms just like yours and ask us how we can help you get those same results. Click here to review the case studies: https://lbmsllc.com/lp-attorneys/Want a free evaluation of your digital marketing presence? Simply click here: https://www.lbmsllc.com/online-presence-report/and we'll send you a free snapshot report to get started.For a copy of my book, 7 Steps to Recession-Proofing Your Business, click this link: https://www.lbmsllc.com/book General Info: Need help with your law firm's digital marketing? Check out these case studies of some killer results we have gotten for law firms just like yours.Click here to review the case studies: https://lbmsllc.com/lp-attorneys/Click here for a free online presence report and marketing analysis. Connect With Us On Social Media:Facebook: https://www.facebook.com/lbmsllcInstagram: https://www.instagram.com/lbmsllc/Twitter: https://twitter.com/lbmsllcLinkedIn: https://www.linkedin.com/company/local-business-marketing-solutionsAlignable: https://www.alignable.com/fanwood-nj/local-business-marketing-solutionsConnect With Frank Directly on LinkedIn: https://www.linkedin.com/in/fdemming/YouTube: https://www.youtube.com/@lbmsllc
Cathy Cunningham, Finance Editor and Co-Deputy Editor at Commercial Observer, Visits Do You Ever Wonder!Do You Ever Wonder host and Hallmark Abstract Service CEO Mike Haltman had the pleasure of sitting down with Cathy to discuss a wide variety of subjects, although the talk was delayed for a couple of days for a very good reason.The delay occurred because of Cathy's involvement with the Multiple Sclerosis Society fundraising event at Belmont Park which brought in $600,000 of donations! Mike Haltman, whose mother suffered from MS, was thrilled to wait!Cathy hails from Scotland about 15 minutes from the Old Course at St. Andrews, and she came to the United States in search of a career in finance, and then real estate finance. And judging by the trajectory of Cathy's career, she has achieved incredible success in a relatively brief amount of time!The conversation between Cathy and Mike traversed a wide range of subjects including CRE sector analysis, the current state of CRE deal financing, loan underwriting standards, the political landscapes impact on commercial real estate (i.e. Blue vs. Red), the impact of social media on the CRE industry, the importance of networking, podcasting and much more.Specifically, they touched on subjects such as 421-a, Good Cause Eviction, and the Housing Stability and Tenant Protection Act of 2019.If you have a story idea you would like to run past Cathy, send her an email at ccunningham@commercialobserver.com.________________________________________________Please subscribe to Do You Ever Wonder using the two links below, and don't be shy about sharing the links with your friends.Subscribe on your favorite streaming platform here: https://areyouwondering.buzzsprout.com/shareSubscribe to Do You Ever Wonder on YouTube here: https://www.youtube.com/channel/UCzmL4Yaump_9Q7tMSChDoUQ____________________________________________Are you interested in appearing as a guest on the Do You Ever Wonder podcast?Let us know at info@hallmarkabstractllc.com.The Do You Ever Wonder podcast is brought to you by New York title insurance provider Hallmark Abstract Service, and hosted by its CEO Mike Haltman.Hallmark Abstract Service...You Buy, We Protect!Read the article 'Are New York Title Insurance Providers All The Same?' here, https://www.hallmarkabstractllc.com/?p=10321.Questions about New York title insurance or the real estate transaction process? Let us know at Hallmark Abstract Service at (646) 741-6101 or send us an email at info@hallmarkabstractllc.com.
What better way for me to celebrate Mother's Day this year than to invite my own mum along for a chat. I started this podcast because I wanted women over 40 to have a platform to share their stories , to be heard and feel seen so I couldn't think of a better way to show my mum some love than to include her in this conversation. How often do we really sit down and listen to older members of our family and friends , It's easy to forget they had a life before being a parent and I loved this weeks chat with my mum. To say that my mum has had her share of battles along the way is an under statement yet her attitude to life has always remained positive and she has shown my sister Deborah and I such strength of character. My mum has suffered with Multiple Sclerosis since I was 2 years old and has had a rollercoaster life with remissions and long periods of illness but her upbeat attitude has helped carry her through. Unfortunately she now has a rare blood cancer to cope with and as we expected she is tackling this with her usual tenacious and pragmatic attitude. Glenda will be 78 this year and there's been many times when she was told she wouldn't make it so every moment spent together is even more precious. Subjects covered- - Adoption - Leaving home at 16 an moving to another place solo - Music & Life in the 60's - Being diagnosed with Multiple Sclerosis at 27 - the impact that had her life and our the family - Multiple Sclerosis Society charity It is estimated that more than 130,000 people live with multiple sclerosis in the UK. MS damages nerves in your body and makes it harder to do everyday things like walking, talking, eating and thinking. It can be relentless, painful and disabling. Across the UK more than 240 local MS Society groups provide support and information to anyone living with MS. The groups, all run by volunteers, offer a brilliant way to meet others affected by the condition and help reduce isolation. A wide range of services and support are available, from social activities and exercise classes, to therapies like physio and massage. The free MS Helpline receives thousands of calls every year from people with MS or their friends, family and carers. Specially trained staff and volunteers provide confidential and free emotional support and information on anything to do with MS, including symptoms, treatments, disability benefits and exercise. MS nurses are on hand to answer medical related queries and a befriending service is available too.The MS Helpline can be contacted on 0808 800 8000, Monday to Friday, 9am to 7pm except bank holidays. You can also email helpline@mssociety.org.uk - Finding courage to start again after divorce at 40 - Community work and confidence building - Travel - Lockdown life - Finding joy through her Grandchildren - Ancestry- Discovering family history and finding closure - Living with cancer I hope you enjoy this episode and more importantly I hope it encourages you to stop and take time out to spend with your loved ones too. Happy Mothers Day! I'll be back in a fortnight but in the meantime Keep being fabulous Rachel x https://linktr.ee/outofthebubble --- Send in a voice message: https://podcasters.spotify.com/pod/show/libertefreetobe/message
India Multiple Sclerosis Day (India MS Day) is the only awareness-raising campaign all over India. This falls on the first Sunday of February every year. This year it is on the 5th of February, 2023. The theme for this year's India MS Day is “Celebrate MS”. Multiple Sclerosis (MS) is a disease of the Central Nervous System, affecting its functioning unexpectedly and repeatedly, resulting in devastating disabilities in young people in the prime of their lives. It is also known as the “Crippler of the Young Adult”. Multiple Sclerosis has various symptoms ranging from minor visual disturbance to total paralysis, due to which simplest everyday tasks can no longer be efficiently performed known as a rare disease, it brings about 41 invisible disabilities hence it has been classified as a disability under the Government of India RPWD Act, 2016. In India there is little or no support for people living with MS i.e., from medicines to Disability cards & pensions and part of our job is to help those people to get together and improve their health & situation. The Chennai Chapter of the Multiple Sclerosis Society of India in keeping up with the theme of this year which is “Celebrate MS, is having an Evening of Song/ Games, etc., at the Anna Nagar Tower Park from 3.00 pm to 6.00 pm on 5th February 2023, in order to create awareness of MS. The Chief Guest of the function is Honored by Chief Guest Shri Gagandeep Singh Bedi, Commissioner, Greater Chennai Corporation, Chennai. The purpose India MS Day campaign is to raise awareness of four key messages in order to improve public knowledge and awareness of MS: 1. There is no known CAUSE or CURE for Multiple Sclerosis (MS). 2. MS is usually diagnosed between the ages of 25 and 40 and lasts a lifetime – KNOWN AS THE “Crippler of the Young Adult” 3. MS symptoms vary from person to person. This makes life with MS unpredictable. There are more “Invisible Symptoms than “Visible Symptoms”. 4. Medicines only stem the progression of the disease. 5. Treatments and services are improving for people with MS, but the costs of treatment are prohibitive We would like you as the Media, to highlight “What MS is” and its Invisible Symptoms thereby creating awareness of this orphan & rare disease, among the general public. Our guests today are from MSSI -Multiple Sclerosis Society of Ind/ are Ms. Ann Gonzalez & Smitha Sadasivan Ms. Ann Gonzalez whose priority today is MSSI the & MS persons. She believes once an MS person comes into our fold it is a lifelong relationship. This is the driving force for this ex-banker who has served at YWCA in various capacities & in many other associations, Her priority today is MSSI. Her driving forces are her siblings who are in the medical field and her strong belief that the Almighty has gifted us a purpose. Smitha Sadasivan is a Cross-Disability inclusion and accessibility practitioner with Multiple Sclerosis from Chennai. Smitha dons many hats and has multiple roles to play including being a resource person. She is the Accessibility Consultant to the Election Commission of India, apart from being an active member of Disability Rights Alliance India. She is a member of the Multiple Sclerosis Society of India (MSSI). She is associated with different forums, initiatives, and organizations including Vidya Sagar& South Asia Regional Program on Women's Institute on Leadership and Disability. Apart from many awards and recognitions, she was awarded the NCPEDP – Mphasis Javed Abidi Public Policy Award for Universal Design, in recognition of her efforts in promoting accessibility for people with disabilities. Listen in as they share their journey with MSSI and how it has helped patients like Smitha & about India MS day this Sunday, Feb 5th, 2023. --- Send in a voice message: https://podcasters.spotify.com/pod/show/the-third-eye1/message
Community DC Host Dennis Glasgow visits with the President of The Multiple Sclerosis Society of the Greater DC - Maryland & Northern Virginia region, tackling Education, Symptoms, Treatment, Support & Research.
In this second UTHC TV English episode, with the sun setting and the temperatures dropping, Lecia and Carmen talk about the effects of this very hot and humid day on the runners and what can be anticipated with a much colder night ahead of them. There are surprise DNFs in this first half of the race. Then, Marling Côté, both avid trail runner and race director of the UTHC for the past 6 years, comes to chat about her own participation in the UTMB, the ideas it has given her that she wants to include in UTHC, and where her vision for Événements Harricana is taking her.One of the reasons for the UTHC is our big fundraiser for the Multiple Sclerosis Society of Canada. We want to break our goal of $125,000. To donate: harricanasp.ca Hébergé par Acast. Visitez acast.com/privacy pour plus d'informations.
In this first UTHC TV English episode, Carmen and Lecia introduce the race to their audience and talk of the leaderboard and some of the important things happening over the course. And then they have as their guest Mariane Hogan, trail runner extraordinaire who is freshly back from the prestigious UTMB, where she placed second despite a serious psoas injury that now has her sidelined. A great episode with a very charismatic runner!One of the reasons for the UTHC is our big fundraiser for the Multiple Sclerosis Society of Canada. We want to break our goal of $125,000. To donate: harricanasp.ca Hébergé par Acast. Visitez acast.com/privacy pour plus d'informations.
Kessler Foundation Disability Rehabilitation Research and Employment
Fast Takes - Episode 40 Read the transcript at https://kesslerfoundation.org/sites/default/files/2022-06/Dr.%20B.%20Sandroff%20on%20cognition%2C%20fitness%20and%20physical%20activity%20in%20progressive%20multiple%20sclerosis-Ep40-TRANSCRIPT.pdf In this episode, Brian Sandroff, PhD, senior research scientist in the Center for Neuropsychology and Neuroscience Research at Kessler Foundation, talks about his peer-reviewed article, “Cardiorespiratory fitness and free-living physical activity are not associated with cognition in persons with progressive multiple sclerosis: Baseline analyses from the CogEx study,” published on October 1, 2021, in the journal Multiple Sclerosis. Funding source: Multiple Sclerosis Society of Canada (grant no. #EGID3185) Learn more about: Dr. Brian Sandroff at https://kesslerfoundation.org/about-us/foundation-staff/brian-m-sandroff-phd Center for Neuropsychology and Neuroscience Research - https://kesslerfoundation.org/center-neuropsychology-and-neuroscience-research The peer-reviewed article at https://journals.sagepub.com/doi/10.1177/13524585211048397 Co-authors: Robert W Motl , Maria Pia Amato, Giampaolo Brichetto ,Jeremy Chataway, Nancy D Chiaravalloti (https://kesslerfoundation.org/aboutus/Nancy%20Chiaravalloti), Gary R Cutter, Ulrik Dalgas , John DeLuca (https://kesslerfoundation.org/aboutus/John%20DeLuca), Rachel Farrell, Peter Feys, Massimo Filippi, Jennifer Freeman, Matilde Inglese, Cecilia Meza, Maria A Rocca, Amber Salter and Anthony Feinstein ===================================================== Tuned in to our podcast series lately? Join our listeners in 90 countries who enjoy learning about the work of Kessler Foundation. Be sure to subscribe to our SoundCloud channel “KesslerFoundation” for more research updates. Follow us on Facebook, Twitter, and Instagram. Listen to us on Apple Podcasts, Spotify, SoundCloud, or wherever you get your podcasts. This podcast was recorded remotely on December 15, 2021, and was edited and produced by Joan Banks-Smith, Creative Producer for Kessler Foundation.
Join me for an informative dive into the world of accessibility with Linda Hunt, Award-Winning Accessibility Consultant, Speaker, Author, CEO of Accessibility Solutions, and Advocate for all things related to accessibility. Linda's FREE Gift to YouSchedule a Free 1:1 Consult with Linda to discuss your accessibility needs https://www.solutions4accessibility.com/Linda HuntLinda first became a person with a disability in 2004 since then she has been an active and engaging speaker to groups on a variety of accessibility topics. Linda has more than 30 years of experience in senior management roles in the public, private, and not-for-profit sectors. She held several leadership positions with the Provincial & Federal Governments, private companies and is a former Executive Director of the Multiple Sclerosis Society of Canada. In addition, Linda and her husband Greg have operated their own business Grelin Apparel Graphics for over 30 years.Connect with Linda HuntWebsite – www.solutions4accessibility.comLinkedIn - https://www.linkedin.com/company/accessibility-solutions/Facebook - https://www.facebook.com/solutions4accessibilityYouTube - https://www.youtube.com/channel/UCRBqblsq_vxrKbdvEp2IOWQIf you enjoyed this episode, consider sharing, reviewing, or rating this on your podcast platform of choice.P.S. To see if 90 Days to 90 Pages is right for your book idea, schedule a call with Katherine.Book a call with Katherine: Select a Date & Time - CalendlyCheck out KBC's website: Katherine Burrows CreativeEmail: katherine@katherineburrowscreative.comConnect with Katherine Burrows Creative on Social MediaLinkedIn: https://www.linkedin.com/in/katherineburrows/Facebook: https://www.facebook.com/katherineburrowscreativeInstagram: https://www.instagram.com/katherineburrowscreative/Business Character Analysis Workshop information: https://katherineburrowscreative.com/index.phpPremium Podcast Production Services by Carl Richards https://podcastsolutionsmadesimple.com Podcast Music by Nathan Symen of NST Music: https://nst-music.bandcamp.com/
Directing Studio Feature Films in Hollyweird with Demian LichtensteinToday's guest is director Demian Lichtenstein. I had the pleasure of being on a panel with Demian at a film festival a few weeks ago. His generous approach to sharing his experience, knowledge and Hollywood war stories was breathtaking. I had to have him on the show to drop some knowledge and truth bombs on the IFH Tribe.Demian has amassed a vast body of work in the music video industry since receiving his BFA from New York University in 1988, leading to his current status as a feature film director. Some past projects include directing Music Videos for Sting & Eric Clapton, Grandmaster Caz, Shabba Ranks, Queen Latifah, West of Eden (Best Independent Video/MTV 1987), Cypress Hill, Gloria Estefan, Sony, Warner Bros, Columbia Pictures, MCA, Epic, Island, Atlantic, Tommy Boy, IRS Records, World Hunger Project, and the Multiple Sclerosis Society.Demian is a member of the DGA (Director's Guild of America) and was Chairman of the New York Independent Film Coalition for two years and has directed, produced, written, photographed, taped and/or recorded audio on over 225 features, short films, music videos, commercials, and concerts.He also shadowed James Cameron on the set of Avatar for a bit but we'll get into that as well. Enjoy my conversation with Demian Lichtenstein.
Salk starts by sharing a memory about a media bracket that (of course) featured John Clayton as a winner before making the announcement of The John Clayton Memorial Fund which will benefit the Multiple Sclerosis Society, a MS research organization supported by Clayton, as well as his wife, Pat. In the place of 'John Clayton's Morning Drive' we take a moment of silence followed by reliving some of John's best wild card moments. See omnystudio.com/listener for privacy information.
In this episode of HappyTalks, we interview John James Santangelo as we discuss various methods of mastering your own emotions. John James Santangelo PhD, nationally acclaimed speaker, author, and results coach, John is a foremost authority in success principles and expert in the field of communication, an NLP trainer, and a clinical hypnotherapist. He's founder of Los Angeles Premier NLP Training Center; a personal and professional training company dedicated to helping people to be able to unleash their natural capability, clarify their goals, over their roadblocks so they can produce the results they deserve! He has worked with companies such as The Learning Annex, Los Angeles Sheriffs Dept., Mary Kay Inc, Multiple-Sclerosis Society, Make-A-Wish Foundation, Well-Point, Xerox, RE/MAX Realtors, the Teamsters Union, and the US Army counter-intelligence team. Dr. Alice Fong is a naturopathic doctor, known as the “Virtual Stress Doc,” and she helps busy professionals break free from stress, anxiety, and burnout without having to quit their jobs using a 5-step holistic approach. She is the founder of Amour de Soi Wellness and her mission is to help people discover self-love and happiness. She has given several talks around the country for healthcare providers, corporations, women's conferences and for the general public. Donovon Jenson is a software engineer in the Bay Area and the founder of howtohappy.com. He is a Utah native who has long been interested in human development and health. He double majored in psychology and health policy, and graduated Magna Cum Laude through the Honors College at the University of Utah. How to Happy strives to provide thoughtful and actionable insights on living a happier life. We believe happiness is the result of self-awareness, balance and a positive mindset, among a myriad of other things. Our goal is to inspire you to see life through a new lens by adding strategies and exercises to your toolbox, then encouraging you to take action. We are all capable of being happier, let's work together to find the best pathways to get there. Together we're out to cause more happiness in the world! John James Santangelo www.LANLP.com https://www.facebook.com/nlptrainingcenter https://www.youtube.com/nlptraininginlosangeles Free NLP Mini-Course... www.LANLP.com/free New STRESS REDUCTION book or Audio - https://www.amazon.com/dp/B09JB4RNP3 Dr. Alice Fong http://www.dralicefong.com https://www.facebook.com/DrAliceFong/ https://www.instagram.com/dralicefong/ https://twitter.com/DrAliceFong https://www.youtube.com/dralicefong https://ios.joinclubhouse.com/@dralicefong Donovon Jenson https://howtohappy.com/ https://www.facebook.com/TheHowToHappy/ https://www.instagram.com/thehowtohappy/ https://twitter.com/TheHowToHappy https://www.youtube.com/HowtoHappy Michael Lira, Voice Actor Opening Credits Voice https://www.michaelapollolira.com/ Information on this video is provided for general educational purposes only and is not intended to constitute medical advice or counseling. #emotion --- Support this podcast: https://anchor.fm/happytalks/support
Monkfish, Multiple Sclerosis, and Twinkies...what do these three things have common? They are all talked about in this episode!Links:Chris Holland's restaurant, Dvine Bar Looking for a worthy cause to donate to for the holidays? Donate to the National Multiple Sclerosis (MS) Society! Check out our new website!: https://www.globalseafood.org/podcastFollow us on social media!Twitter | Facebook | LinkedIn | InstagramShare your sustainability tips with us podcast@globalseafood.org or leave us a voicemail at +1 (603) 384-3560!For the full-length interviews of our guests, online education courses and more, become a member of the Global Seafood Alliance: https://www.globalseafood.org/membership/
On Giving Tuesday (November 30, 2021) donations to the Multiple Sclerosis Society of Canada have triple the impact, thanks to an anonymous donor. Officials with the MS Society of Canada say each gift will offer three times the support to Canadians affected by multiple sclerosis. John Cuddie, volunteer with MS Society of Canada joins Mike Stubbs to discuss. See omnystudio.com/listener for privacy information.
“When you are forced to kind of pause everything in your life… it gave me a lot of time to just reflect on what I was doing with my life and where my priorities were.”- Mélissa LehouxMy guest for this episode, Mélissa Lehoux, has one of the most incredible calligraphy stories I've ever heard — and her story is proof that calligraphy is for absolutely everyone.In the summer of 2018, Mélissa was diagnosed with aggressive Multiple Sclerosis, a disease that causes her immune system to attack her central nervous system, leading to nerve damage, numbness, tremors, and loss of motor control.She picked up her first calligraphy pen in March of 2020… and launched her calligraphy business just 3 months later.And let me tell you — she is making it WORK. And giving back while she does it.Through her business, Chronic Letters, Mélissa offers clients her own style of beautiful calligraphy… and every purchase supports the Multiple Sclerosis Society of Canada.In this interview, Mélissa shares some inspiring insights into the power of calligraphy to spark creativity, how she created business-savvy connections with other creatives in her city, and how discovering her love for calligraphy has helped her with her diagnosis.Tune into this episode of The Shinah Show to find out:How to put yourself out there and carve out a space for your own unique calligraphy style Mélissa's business tips for new creative entrepreneurs who are ready to take the plungeHow calligraphy can actually be medically beneficial when it comes to certain conditions (yes, really!)About Mélissa Lehoux: Mélissa is an artist, calligrapher, and mom from Ottawa, Canada, trying to maneuver life's multiple facets… with a chronic illness tagging along. She was diagnosed with aggressive Multiple Sclerosis in 2018 and her journey to acceptance led her to her passion for calligraphy.Highlights: 00:33 Intro02:18 Meet Mélissa from Chronic Letters!03:32 Her MS diagnosis05:18 Embracing the shake06:53 Medical benefits08:52 The invisible, uncertain disease10:14 Learning to go for it12:47 Chronic Letters15:27 Creative entrepreneur advice17:46 Putting yourself out there (& distinguishing yourself)20:00 Is the market too saturated?20:51 Networking with your local connections23:04 What's next for Chronic Letters?24:30 How Mélissa learned so quickly!27:15 Final takeaways & find Mélissa30:15 Recap Links: Chronic Letters: lifewithasideofchronic.com Instagram: @chronicletters Free resource for anyone looking to start their calligraphy business: chronicletters.com/chronic-letters-business Learn calligraphy with me: www.freecalligraphyworkshop.comFollow me!Instagram: @crookedcalligraphyFacebook: facebook.com/crookedcalligraphy Show notes can be found at theshinahshow.comWatch these episodes on YouTube: https://www.youtube.com/channel/UCVJJZS9jYDmzePAnaGDiFuw Make sure to subscribe to my YouTube channel, and ring the bell for notifications so you never miss an episod
Ava Battles, Chief Executive at the Multiple Sclerosis Society of Ireland joins Debbie on the line to talk about the society & their work. Multiple sclerosis is a progressive disease characterized by loss of myelin from nerve fibers within the brain and spinal cord (central nervous system)
Carmel Macmillan has more than 40 years' experience in the marketing sector and more than 15 years as a Non-Executive Director (NED), but it is her transparency about her personal life and lived experience that has contributed to her successful career. She was one of the first women in Brisbane to be appointed manager of a large company. Unbeknownst to many of her colleagues, while juggling her corporate responsibilities for Golden Casket Lottery Corporation, she was also caring for her infant son who wasn't meeting his development milestones. Times have changed and with the support of WOB's My Mentoring Program, Carmel was given the confidence to articulate her story. While Carmel's son is classically considered to have a disability, Carmel is quick to identify his many extraordinary abilities. She shares in this episode how caring for her son inspired her to serve on purpose-driven organisations that align with her values, including NED for Women on Boards, the MS Society of Queensland and the Mater Foundation. Raised by her proud Italian family in Brisbane, a strong sense of community has always been integral to her choices. Carmel's board portfolio consists of national and state-based organisations in disability, health, commercial property, member-based and arts. She adds value through business transformation — specifically strategy, digital and innovation — while actively championing the client perspective within the Board environment. She is now on the hunt for an organisation in the disability and aged sector, as she navigates caring for her 88 year-old mother who has Alzheimer's Disease. Carmel's board roles include: NED, Women On Boards Board Director, The Mater Foundation Board Director, Multiple Sclerosis Society of Queensland LinkedIn Carmel Macmillan | Claire Braund (host) Further Information about Women on Boards WOB membership, events & services, please visit our website. To receive our weekly newsletter, subscribe to WOB as a Basic Member (free). Join as a Full Member for full access to our Board Vacancies, WOBShare (our online member platform) and more.
Want to help us grow the show? Leave us a Rating and Review!“I think ideas are nothing without that grind. And it's the same with running, you can have all the talent, but you have to be able to get through the setbacks that come. Whether that's injuries or poor performance. It’s just being able to keep pushing through.”“Giving back” is a desirable achievement but something that is not always prioritized. Except with Nick MacFalls.He’s managed to bring together his skills and passions over and over to build community, develop programs, produce engaging and fun events and live a life filled with meaning and purpose.Show Topics(2:57) A crazy Italian family, bootlegging, and the ‘84 Olympics—Nick’s recollection of early, formative years growing up in Pennsylvania.(5:03) A stepfather’s influence and the opportunities that came from being a high school cross country champ…(7:31) “I volunteered at the VA and the recreation department and everyone's like, 'Man if I had to do it again, I'd go into the Air Force.' And I heard that so much.” Choosing the Academy…(9:30) Balancing the requirements of Air Force, school, and running…(11:29) Gaining perspective from a prisoner of war, “They broke me yesterday, but I'm going to win today.”—Colonel Kenneth Hughey(14:38) “I wasn't really driven into the military. It was a way out for me.”(15:13) The benefits of being in the military…(16:23) Getting around an asthma setback…(19:42) The Military World Games…(23:40) A shoe program begins…(27:21) “I put on events for the Multiple Sclerosis Society and I think I'm happiest when I'm packing the trucks.” The sweet spot of coordinating events…(28:28) Creating events focused on team camaraderie and the whole field of athletes…(32:18) “Having a group to run with, do workouts with, grab a beer with that became the focus for me in the latter part of my running career.”(33:30) The four pillars…(34:05) Working with the MS Society...(38:06) A funny and relatable story of every runner’s worst nightmare…(41:15) What does Go Be More mean to you? “I really look at things on a day-by-day basis and there are things that I want to accomplish every day that are part of a bigger goal. And like I said, I'm kind of a grinder. So, a great day for me is a day that I accomplished something, that I get to work out, that I get to connect with someone. For me, those are the aspects that I like to keep feeding in my life. And when one of them's missing, I feel something's missing in my life. So that's the biggest thing, balancing connectivity and consistency.”If you liked this episode, check out our interviews with coach/event promoter Tracy Sundlun and Nick's former roommate US marathoner Peter Gilmore.Recorded February 22, 2021.References:Colonel Kenneth Hughey - POW NetworkMilitary World Games - WikipediaNational MS Society - websiteBeer Mile World Classic - websiteGuests:Nick MacFalls - LinkedInHosts:Bryan Green - bryan@gobemore.co, maketheleapbook.comJon Rankin - @chasejonrankin, Go Be MoreLinks:Go Be More Podcast - Episodes | Instagram | FacebookGo Be More websiteGo Be More YouTube ChannelProduction and EditingCreatives Collective Marketing
This podcast episode was originally recorded for "Mormon Sex Info" Podcast. It's now being refurbished for your enjoyment here at the "Healing Sols Podcast." For more from Natasha Helfer, LCMFT, CST, CSTS, please visit https://www.natashahelfer.com. Natasha Helfer Parker interviews Aimee Heffernan, LMFT in regards to achieving what can at times seem like the elusive female orgasm. They cover all types of topics from psychological aspects that can get in the way of climax, to specific techniques that women and their partners can find helpful. What ruts can we get stuck in either in regards to sexual practice or sexual meaning? How does self-pleasure and self-exploration begin a self knowledge that can translate to orgasmic potential? How can using a vibrator help achieve orgasm? Does the G-Spot exist? What about multiple orgasms? What is squirting? How do we improve our communication skills around these types of conversations? Aimee Heffernan grew up in Salt Lake City in a very open-minded, unorthodox, feminist, Mormon home. She was raised with the beautiful aspects of Mormon theology balanced with the nuance and complicated parts church history. Aimee attended Western Washington University in Bellingham, WA before she went on her mission to Sendai, Japan. She graduated from the University of Utah with a degree in Sociology and with a masters degree from Seattle Pacific University in Marriage and Family Therapy. Aimee has a private practice in Redmond, WA, where she specializes in relationships, infidelity, sexuality, faith/spirituality crisis and transitions, mixed faith marriages, women's issues, self-esteem and identity. She is a trained educator for the Gottman Bringing Baby Home program. She is currently working towards becoming a certified sex therapist through AASECT. Aimee has presented for the NW Chapter of the Multiple Sclerosis Society, local schools, more church functions than she can count, and enjoys speaking about mental, emotional, and sexual health. Resources mentioned during the podcast: My Official Stance on Masturbation blog post by Natasha Helfer Parker How Can I Go to the Temple if I'm Still Masturbating blog post by Natasha Helfer Parker Kristin Hodson featured on Episode 1: Porn Addiction: Is It Real? LDS Female Sexuality with Jennifer Finlayson-Fife on Mormon Mental Health Podcast OMGYES Kinsey Institute Sex + w/ Laci Green Sexplantions with Dr. Doe Lovers Blue Boutique located in Salt Lake City Sex toy called Double Trouble Other Resources: Sex Smart Films: Promoting Sexual Literacy The Clitoris: A Complete Sex Guide Babeland
Kessler Foundation Disability Rehabilitation Research and Employment
Fast Takes - Episode 11 View the transcript at https://kesslerfoundation.org/sites/default/files/2021-01/COVID-19%20Impact%20Survey%20Yields%20Unexpected%20Findings%20for%20Individuals%20with%20Progressive%20MS_0.pdf In this episode, Dr. Nancy Chiaravalloti, Director of Our Center for Neuropsychology and Neuroscience and Center for Traumatic Brain Injury Research to talks about her latest peer reviewed article “COVID-19 Impact Survey Yields Unexpected Findings for Individuals with Progressive MS" which was published online August 19, 2020 in Journal of Neurology at https://link.springer.com/article/10.1007/s00415-020-10160-7 and at Kessler Foundation at https://kesslerfoundation.org/press-release/covid-19-impact-survey-yields-unexpected-findings-individuals-progressive-ms. Funding sources for this study is the Multiple Sclerosis Society of Canada grant EGID3185. Co-authors: Maria Pia Amato, Giampaolo Brichetto, Jeremy Chataway, Ulrik Dalgas, John DeLuca, Cecilia Meza, Nancy B. Moore, Peter Feys, Massimo Filippi, Jennifer Freeman, Matilde Inglese, Rob Motl, Maria Assunta Rocca, Brian M. Sandroff, Amber Salter, Gary Cutter, Anthony Feinstein & on behalf of the CogEx Research Team Follow us on Facebook, Twitter, and Instagram. Listen to us on Apple Podcasts, Spotify, SoundCloud, or wherever you get your podcasts. This podcast was recorded on September 17, 2020 remotely and was edited and produced by Joan Banks-Smith, Creative Producer for Kessler Foundation.
Communication challenges for charities and non-profits Who are the distinct audiences for a charity? What's the nuances to consider when communicating? What're the similarities among the distinct audiences? What are the results of negative versus positive messaging? What are the challenges of coordinating a national message in two languages? Yves Savoie reveals the perspective of communication from charities. He is the former CEO of Heart and Stroke Canada, and before that, the CEO of Multiple Sclerosis Society of Canada. Yves Savoie provides advise and consulting on governance, strategy and impact to charities. Learn more at his website https://www.yvessavoie.ca/ https://www.linkedin.com/in/yves-savoie-b4925916/ Your Intended Message is the podcast about how you can boost your career and business success by honing your communication skills. We'll examine the aspects of how we communicate one-to-one, one to few and one to many – plus that important conversation, one to self. In these interviews we will explore presentation skills, public speaking, conversation, persuasion, negotiation, sales conversations, marketing, team meetings, social media, branding, self talk and more. Your host is George Torok George is a specialist in communication skills. Especially presentation. He's fascinated by the links between communication and influencing behaviours. He delivers training and coaching programs to help leaders and promising professionals deliver the intended message for greater success. Facts about George Torok He hosted the radio show, Business in Motion for 19 years, interviewing over 500 guests He wrote Secrets of Power Marketing, the bestselling book of personal marketing By the age of 21 he had visited 35 countries Connect with George www.torok.com www.SpeechCoachforExecutives.com www.SuperiorPresentations.net https://www.linkedin.com/in/georgetorokpresentations/ https://www.instagram.com/georgetorok/ https://www.youtube.com/user/presentationskills1
Business Scale Insights continues our September, 2020 series on RESILIENCE with Glen Benjamin. Glen is an expert with over 40 years experience helping organzations, large and small, become more resilient, better and more optimal functioning. Glen is a long-term South Florida resident who has worked in the Technology industry for nearly 40 years in a variety of Sales and Partner/Channel roles for organizations such as HP, Citrix, AT&T, Sprint/Nextel, CenturyLink and is currently a Client Executive for a South Florida-based IT Services Provider, LAN Infotech. Glen has a diverse background in Technology with specializations in Cybersecurity, Edge Devices, Cloud, Connectivity, Business Continuity, Social Media and Mobility-IoT to successfully deliver End-to-End Solutions for his clients. He has been a member of TechLauderdale and the South Florida Technology (SFTA) as well as its predecessor, the South Florida Telecom Forum (SFTF) for about 20 years and for the past 4 years has been a Board Member of TechLauderdale along with our keynote event that is held annually, ITPalooza. Glen has volunteered his time for a variety of local charities such as the South Florida Institute on Aging (SoFIA), The Superhero Leadership Academy, The Dan Marino Foundation, Leukemia and Lymphoma Society, Alzheimer’s Association, Multiple Sclerosis Society amongst other organizations. In my personal time, Glen enjoys spending time with his Granddaughter and family and being a fanatic for the Miami Dolphins. Feel free to reach out and connect with Glen at: Email: gbenjamin@laninfotech.com Telephone: 954-974-6262 LinkedIn: https://www.linkedin.com/in/glenbenjamin/ Blog: http://mobilitycloud.me Twitter and Skype: @glenbenjamin --- Support this podcast: https://anchor.fm/businessscaleinsights/support
On this unique episode of the Cameron-Brooks podcast, we interview an alumni about his journey with multiple sclerosis and his positive mindset in handling adversity. Kevin Byrne, a former Army Apache Helicopter Pilot, who transitioned through the Cameron-Brooks program in 2000, recently volunteered to be a guest on our podcast. Kevin has a heroic story to tell. This podcast is unlike any other we have done in 100+ episodes. At first, I thought we were going to discuss Kevin's career and transition and maybe he did as well. However, as I studied his LinkedIn profile, I noticed something particular about his career. He has not been working for the last 3 years. As Kevin says, he is twice retired. First in 2000, he medically retired from the Army due to Multiple Sclerosis diagnosis and again in 2017 due to the effects of the debilitating disease. In this podcast, Kevin tells his story on continually adapting to his life situation and handling adversity. He says, "This disease will never stop and never quit, so neither will I." With this motto, he started a non-profit "Never Stop, Never Quit" to to raise money for larger/national organizations intent on finding a cure for, and managing the devastating effects of, multiple sclerosis. Prior to his "second" retirement, Kevin worked in Corporate America for 17 years in a variety of procurement and supply chain roles and organizations. During this time, he also served on various non-profit boards such as the Oregon Chapter of National Multiple Sclerosis Society and West Point Society of Oregon. Most significantly, he started blogging as an outlet to express emotions battling this disease. He then turned those blogs into writing books and has written 5 books to include My MS and E which he wrote with his daughter, Eleanor. All proceeds from his books support the National Multiple Sclerosis Society. From Kevin's website, here are his harsh realities: • There is nothing on the market today with the ability to cure my multiple sclerosis or send it into remission. • It is debatable whether or not my current medications are slowing the progression of my MS, giving me an extra year when, before, I only had a month. • There is no known way to recover function I have lost, or will lose, due to the damaging effects of my MS. • There is no way to predict, identify, or isolate early-onset MS, and eradicate the disease before it affects the next generation. • Not yet… Overcoming those realities are our dreams; the only possibilities for realization come in the form of research and development. Your financial support is needed if we are going to win this fight. Because it is a fight. The fight is not over and it won’t be over until a cure is found. It will never stop…nor will we It will never quit…nor will we This is why we fight! Please support our fight. Please consider a donation to the Multiple Sclerosis Society, supporting Kevin's daughter, Eleanor, in her personal fundraising efforts, or buying one of his books. You can follow Kevin on LinkedIn, his blog and website or his Amazon Author page. Joel Junker
Today's episode of Mindfulness Monday features Ora Nadrich interviewing Dennis Merritt Jones, author of The Art of Being: 101 Ways to Practice Purpose in Your Life, and The Art of Uncertainty: How to Live in the Mystery of Life and Love It. About Dennis Merritt Jones: Throughout his lifetime, Dennis Merritt Jones has been on a quest to inspire and lift people to a higher expression of life. His personal vision is to guide people to their purpose, knowing that when one fully awakens to who they are and why they are on the planet, they begin to naturally share their gift with humankind and, in the process, create an enriching life for themselves and the world around them. Dennis' most recent book, The Art of Abundance ~ Ten Rules for a Prosperous Life was released in July 2018 by Tarcher/Perigee/Penguin/Random House. In addition, a Discussion Guide for the book is available as a free download at www.DennisMerrittJones.com. In 2017 Spiritual Living Press published Dennis' book Encouraging Words ~ Articles & Essays That Prove Who You Are Matters. His prior releases under the Tarcher/Penguin imprint are: Your (Re)Defining Moments ~ Becoming Who You Were Born To Be; The Art of Uncertainty ~ How to Live in the Mystery of Life and Love It; and, The Art of Being~ 101 Ways to Practice Purpose in Your Life. Both The Art of Uncertainty and The Art of Being have been recipients of Nautilus Awards which highlight books that offer new ideas and options for a better world for everyone. In addition, both writings have received Books for a Better Life Award from the Multiple Sclerosis Society. The Art of Uncertainty was also the 1st runner-up in the 2012 Books for Conscious Living. Study Guides are available for both books as a free download at www.DennisMerrittJones.com. In addition to his books, Dennis is a columnist for the Huffington Post and Science of Mind magazine. Dennis believes we each have the capacity and, ultimately, the responsibility to contribute something positive to this world, leaving it a better place than it was when we arrived. His teachings promote a contemporary, life affirming, spiritually logical and positive outlook on life, which are reflected in his writings. Dennis is a universal speaker who is equally comfortable speaking to an audience seeking spiritual inspiration or to those seeking a purely secular motivational message. He uses his understanding of universal principles to draw upon wisdom from both eastern and western philosophies. He believes that there is a deeper consciousness of unity, cooperation and reverence rising in humankind where the value of all life, regardless of ethnicity, geography, culture or sexual orientation, is considered sacred. He believes this consciousness of unity, cooperation and reverence for life and the planet will be one of the most significant influences upon society as we approach the challenges of 21st century living. For more information, please contact info@DennisMerrittJones.com. This episode originally was broadcast LIVE on June 15, 2020 at Facebook.com/authororanadrich
Janet Hamada Kelley, President of the Pacific South Coast Chapter, chats about the Chapter's impact on Multiple Sclerosis research, advocacy and services for those individuals and families affected by MS. Hamada Kelley talks about upcoming virtual MS Society events.
Melinda Clark is a graduate from the University of Texas at Tyler with a degreein Interdisciplinary Studies with a certification in Elementary Education andEnglish as a Second Language. She is a former elementary school teacherof 18 years. The majority of those years were in the classroom teachinggifted and talented students.She has taught in a variety of school settings, including public, private andcharter, and has spent many years tutoring students outside of theclassroom as well. She is a trained grant writer and has volunteered formany organizations including Junior League of Houston, American HeartAssociation, Multiple Sclerosis Society, and Texas Children's Hospital.Melinda resides in Richmond, Texas, with her husband and children. She is currently an entrepreneur and loves the hardest and most rewarding job ofall, being a mom. She enjoys volunteering, cooking, reading, exercising,and spending time with her family.Don’t Miss This Episode…“This Is The Year For Your New Book”
As Saturday May 30th is World MS Day, Ava Battles Chief Executive at Multiple Sclerosis Society of Ireland joins Ivan to discuss. Listen and subscribe to The Hard Shoulder on Apple Podcasts, Google Podcasts and Spotify. Download, listen and subscribe on the Newstalk App. You can also listen to Newstalk live on newstalk.com or on Alexa, by adding the Newstalk skill and asking: 'Alexa, play Newstalk'.
For 2020, the annual WALK MS fundraisers on behalf of the National Multiple Sclerosis Society are going virtual! President of the Greater NYC/Long Island Chapter Dana Miele, and Philip Terra, living with MS and member of the Staten Island Planning Committee, explain why their fundraisers remain crucial, even in the midst of COVID-19. For more, visit WALKMS.org.
For 2020, the annual WALK MS fundraisers on behalf of the National Multiple Sclerosis Society are going virtual! President of the Greater NYC/Long Island Chapter Dana Miele, and Philip Terra, living with MS and member of the Staten Island Planning Committee, explain why their fundraisers remain crucial, even in the midst of COVID-19. For more, visit WALKMS.org.
For 2020, the annual WALK MS fundraisers on behalf of the National Multiple Sclerosis Society are going virtual! President of the Greater NYC/Long Island Chapter Dana Miele, and Philip Terra, living with MS and member of the Staten Island Planning Committee, explain why their fundraisers remain crucial, even in the midst of COVID-19. For more, visit WALKMS.org.
Episode 9 of Details of Life with Marcus Wilson brings you Public Speaker and 2020 Multiple Sclerosis Society 'Man of Courage' award winner, Brian Phillips. Brian tells his story of the challenges of being diagnosed with Multiple Sclerosis, how he keeps a positive outlook on life through his support group and controlling what you can control. This conversation is both inspirational and educational as Brian touches on many life lessons that we all need to be reminded of! Watch, like, subscribe and share! This story needed to be told and needs to be shared! If you'd like more information on Multiple Sclerosis or the Multiple Sclerosis Society, visit their website at https://www.nationalmssociety.org/ If you'd like more information on Chateau Maplewood, visit their website at https://www.chateaumaplewood.com/ Intro and outro music provided by The Cold Stares: https://www.thecoldstares.com/
Our first guest is Captain/Chef Lenny STROBEL. We catch Lenny in Cabo smoking a cigar. He runs the REEL*TIME USA CATCH AND RELEASE CATCH AND RELEASE CHALLENGE coming up Saturday, May 16th, 2020. The event raises awareness and funds for Multiple Sclerosis Society. Details at https://reeltimeusa.com. Next we track down Scooter Griffith. He’s the owner of Arizona Fishing Guides … Read more about this episode...
If there is one thing I know about Lori Brauer, it's her enormous heart. You can feel it the moment you meet. For the past 15 years Lori has been engaged in work with non-profits, raising funds and attention for less than fortunate people and worthy causes. The other thing about Lori is that she is self-effacing. Her sense of humility comes out during our conversation as you'll hear, always giving credit to others and drawing it away from her. We also talk about Lori's entrepreneurial ethic of figuring things out even when she doesn't know a thing and is not afraid to dive in to make things happen for others. One of the tools in her quiver is story-telling, and we talk about how this essential entrepreneurial skill comes to play. Currently committed to a non-profit startup, the OMPT Foundation, whose goal is to provide the basis for even the most disadvantaged kids "to have a success story." OMPT Foundation is currently working with schools in the Ferndale, MI school system with basics: food, hats, gloves, socks, underwear. Lori's bent as an entrepreneur has helped the Foundation grow from just one to four schools in less than a year. We spend the beginning of the episode talking about this current work helping these kids and her history in non-profits, which include stints with the Michigan Council of Women in Technology and The Epilepsy Foundation of Michigan. Lori expresses her passion that even the smallest contribution helps. Lori's entre into the non-profit world was a natural extension of her running. A tragic family event while training for the Detroit Free Press Marathon led her to raising money for Multiple Sclerosis Society and running the marathon with the name of her sister-in-law written on the insoles of her shoes while calling on her spirit to help Lori through the long 26.2 miles. Ten years later, in prepping for a celebration for her 50th birthday, Lori decided she wanted to skydive. There was another family loss, this time her Dad was stricken with cancer. In true fashion, Lori decided again that "it can't just be without me." While mourning the loss of "my biggest fan", Lori raised money for both the American Cancer Society and the MS Foundation. And she did the jump: https://youtu.be/wxxwyJWaOkc. if you watch the video, you might even see Lori's husband Rick, whom I'm told wasn't as excited as Lori about jumping out of an airplane. Lori's passion for running comes back around when we turn to her work designing and making jewelry. As far as artists go, Lori is very kinesthetic. That's why, she says she was attracted to designing and making jewelry. I met Lori on the marathon expo circuit when she was selling running and other sport-themed jewelry she made at her workshop at home. We then turn to her sense of what motivates creatives and how to overcome blocks and her sense of what creatives do. Running comes up as a theme again when she met her husband Rick through a local running store and their mutual passion for running. In fact, Rick and Lori started the US arm of Parkrun, which started in the UK as a free, weekly timed 5k run. Since the very first Parkrun in Livonia's Bicentennial Park in 2012, it has grown to 41 different Parkruns in the US.
MS News Today's columnist, Jennifer Powell, discusses TD Bank Group's $1 Million donation to the Multiple Sclerosis Society of Canada to support research projects aiming to use Artificial Intelligence to create better DMT's for people living with Multiple Sclerosis. Are you interested in learning more about Multiple Sclerosis? If so, please visit https://multiplesclerosisnewstoday.com/
John James Santangelo PhD, nationally acclaimed speaker, author, and executive business coach, has been a guiding force in empowering individuals, businesses, and corporations to excel at peak performance. John is a foremost authority in success principles and expert in the field of communication, an NLP trainer, and a clinical hypnotherapist. He has worked with companies such as The Learning Annex, Los Angeles Sheriffs Dept., Mary Kay Inc, Multiple-Sclerosis Society, Make-A-Wish Foundation, Well-Point, Xerox, RE/MAX Realtors, the Teamsters Union, and the US Army counter-intelligence team.
Today we celebrate the scientist who set the stage for Plant Anatomy and the amazing botanical illustrator Marianne North who traveled the world, capturing exotic flowers with her magnificent oil paintings. We also celebrate Margaret Owen, the English galanthophile and gardener we lost five years ago today. We'll hear some thoughts from Emily Dickinson about Autumn - it's her Nature 27 poem - with the famous line "I'll put a trinket on." We'll Grow That Garden Library with today's book The Daylily by John P. Peat and Ted L. Petit I'll talk about the perennials you can cut back right now and then wrap things up with a sweet story about the rose poem that went viral in 1885. But first, let's catch up on a few recent events. Early this month, Hoodline published an article about Ink Dwell’s latest installation as part of their Migrating Mural project. Ink Dwell selected a location at 455 Hyde Stin San Francisco as the site of their next Monarch Mural. The 44-unit, 11-story apartment building was due for a new paint job anyway, so it was the perfect canvas for the project. Imagine an 11-story mural dedicated to the monarch! Ink Dwell has installed similar murals at eight other locations across the country to raise awareness about the declining monarch butterfly population. The project on Hyde street will be the largest installation - covering three sides of the building, and Ink Dwell hopes the mural makes Monarchbutterflies "impossible to ignore." Ink Dwell and its conservation partner, the Xerces Society, work with communities to provide information and educational materials about the butterflies’ migration, and the current population declines for pollinators. Gardenista recently shared an excellent article by Barbara Peck called 10 Things Your Landscape Architect Wishes You Knew (But Is Too Polite to Tell You). I'll share 3 of my favorites from this list right now: First, your children will quickly outgrow your space. In the piece, landscape architect Kate Stickle y says: “Your children will outgrow, out-throw, and out-kick your small lawn long before you finish creating your garden, so don’t plan your space around them.” She suggests that while your kids are young, let them blow off steam in the neighborhood park. Meanwhile, plan an outdoor space for your future teenagers and their friends—one that feels private (but is still within the property lines)." Second, gravel can’t replace mulch. Some folks prefer gravel because it stays in place. But, gravel offers nothing nutrient-wise for the soil. Landscape Architects Gretchen Whittier and Kate Stickley suggest "planting ground cover near walkways and giving it time to spread out. You may still need mulch, but perhaps only for one season." Third, a specimen tree won’t live forever. "Designing and building your new house around a beautiful specimen tree isn’t always the best course of action. Before even starting the design process, consult an arborist to find out the tree’s health and longevity." Now, if you'd like to check out these curated articles for yourself, you're in luck - because I share all of it with the Listener Community in the Free Facebook Group - The Daily Gardener Community. So there’s no need to take notes or track down links - just head on over to the group - and join. Brevities #OTD Today in 1632, the "father of microbiology" Antonie van Leeuwenhoek was born. Leeuwenhoek's interest in making lenses led to his discovery of microbial life. Leeuwenhoek's work set the stage for plant anatomy. #OTD Today is the birthday of the intrepid traveler and botanical artist Marianne North who was born on this day in 1830. Marianne's father was friends with Darwin and Sir Joseph Dalton Hooker, who was the director of the Royal Botanic Gardens, Kew. When she was 25 years old, Marianne's mother died, and she turned to flower painting as a way to cope with her grief. Fifteen years later, right before she became forty, Marianne's father died. By this point, Marianne was an experienced traveler and painter. She had means and autonomy. Marianne decided to spend the rest of her life traveling the globe to find and paint the exotic flowers of the world. Among her many excursions, Marianne spent a year living in a hut and painting the flowers of the Brazilian forest. She painted the giant redwood trees of California and was heartbroken at their destruction. It was Marianne North who said, "It broke one's heart to think of man, the civilizer, wasting treasures in a few years to which savages and animals had done no harm for centuries." In September 1880, based on the recommendation of her father's great friend Charles Darwin, Marianne visited Australia. As for Marianne, she referred to Darwin as "The greatest man living." Darwin specifically suggested Australia for Marianne because the flora and fauna down under were less known and more unique. Marianne traveled by coach between Brisbane and Sydney, painting at every stop when she lamented, "they never stop where the flowers are!" To make matters worse, the brevity of the overnight stops meant her oil paintings didn't have time to dry completely. During her visit, Marianne painted a tree that would become known as The Marianne North tree. It was a twisted Karri tree located near Pemberton. Marianne single-handedly created over 1,000 pieces of flower art. She became a renowned botanical illustrator with several plant species named in her honor; her body of work has been on permanent display at Kew Gardens since 1882. If you can imagine a gallery of rooms with walls plastered with pieces of art about the size of an 8.5 x 11 sheet of paper, you can envision the impact of standing in the Marianne North Gallery. The 832 paintings represent 20 years of travel over five continents and 17 countries, capturing the scenery and flora in vibrant oil color. The North Gallery was paid for by an endowment from Marianne North. In 2016, the BBC aired a documentary about Marianne North called Kew's Forgotten Queen. #OTD Today is the fifth anniversary of the death of Margaret Owen, who died on this day in 2014. Owen was an English farmer and gardener. When she was twenty, Margaret married Godfrey Owen (he had proposed to her in a cattle shed). On their family farm, they raised four children together. They were together for 33 years. But, when Margaret was 53 years old, Godfrey died from a brain tumor. Margaret decided to move out of the farmhouse, and she gave the farm to their son. But she had the idea of keeping an acre of land for herself to create a garden she called "the Patch." With her focus on gardening, Margaret found herself drawn to snowdrops, and she became a galanthophile (an expert on snowdrops). Margaret herself discovered many stunning snowdrops. She named one of the most striking after her husband - calling it the 'Godfrey Owen.' The Godfrey Owen snowdrop is a stunner. It's a double-flowered snowdrop with six outer petals and six inner segments. (Most snowdrops have just three exterior and three inner petals). Margaret also named other plants in honor of her husband. She named an Iris, a Bergenia, and a Guernsey Lily species Godfrey Owen as well. As a plantswoman extraordinaire, Margaret is remembered by many for her "snowdrop parties" which took place on the last Saturday in February. Margaret happily hosted a who's who of English horticulture. The day after the party, Margaret would dig up her snowdrops in the Patch and sell them to her guests and visitors. Then, she donated all the proceeds to the Multiple Sclerosis Society in honor of her sister. Unearthed Words "The morns are meeker than they were, The nuts are getting brown; The berry's cheek is plumper, The rose is out of town. The maple wears a gayer scarf, The field a scarlet gown. Lest I should be old-fashioned, I'll put a trinket on." - Emily Dickinson, Nature 27 - Autumn Today's Grow That Garden Library book recommendation: The Daylily by John P. Peat and Ted L. Petit Daylilies are tough, carefree beauties. They can survive the tropical heat of a Florida garden and the bitter cold of a northern garden. And, daylilies are some of the easiest plants to hybridize. For close to 100 years, Gardeners have been hybridizing their most desirable features in an attempt to create new, more evolved daylilies. Peat and Petit were inspired by Bill Munson Jr.'s classic book on Hemerocallis or the daylily . They review the history of the daylily and share many of the hybrids along with excellent advice for growing, featuring chapters from some of the top daylily authorities from around the world. I love what they mentioned in the preface of their book about gardeners who join daylily clubs and societies. They said that gardeners "come for the flower but stay for the people." This book came out in 2004. You can get used copies using the Amazon Link in today's Show Notes for under $10. Today's Garden Chore Plants That Should Be Cut Back In The Fall: Hostas Yarrow Peonies Coreopsis Bee Balm Daylilies Iris Something Sweet Reviving the little botanic spark in your heart It was on this day in 1885 that a little poem about a rose by the English poet Henry Austin Dobson appeared in the Leicester Chronicle in England. It was an instant hit and picked up by newspapers around the world. I spent a bit of time piecing together various remnants about the poem online, and I cobbled together a little backstory along with my analysis about this charming piece to help you understand it. Dobson's poem is titled A Fancy from Fontenelle, and it has a long French subtitle, which means "as fas as any rose could remember, no gardener had ever died." The French philosopher and writer Diderot inspired Dobson. In 1769, Diderot wrote a story about something called the Fallacy of the Ephemeral. One of the main characters in the story is named Fontenelle. The Fallacy of the Ephemeral alludes to the false belief held by Fontenelle's garden roses that their gardener is immortal. The roses emerge in the spring, they thrive in the summer and go dormant as fall changes to winter. Through every season, the gardener is always there tending to them. In other words, no rose [has ever lived long enough] to remember the death of the gardener. Along those lines, Dobson's poem is also told from the perspective of the rose. In this case, the rose is vain and self-assured; she incorrectly assumes that she will outlive the old gardener that tends her. Dobson's message reinforces the Fallacy of the Ephemeral. The simple truth is revealed at the end of the poem: beauty fades and time marches on. THE ROSE in the garden slipped her bud, And she laughed in the pride of her youthful blood, As she thought of the Gardener standing by — “He is old — so old! And he soon must die!” The full Rose waxed in the warm June air, And she spread and spread till her heart lay bare; And she laughed once more as she heard his tread — “He is older now! He will soon be dead!” But the breeze of the morning blew and found That the leaves of the blown Rose strewed the ground; And he came at noon, that Gardener old, And he raked them gently under the mold. And I wove the thing to a random rhyme: For the Rose is Beauty; the Gardener, Time. Thanks for listening to the daily gardener, and remember: "For a happy, healthy life, garden every day."
It can be deeply challenging to find the silver lining among unexpected, life-altering experiences, but that’s exactly what Carlyn Shaw had to do in order to get by. An MS diagnosis and the death of two best friends in short succession sent Carlyn on a path of awakening that has spanned decades. Find out how challenging lows, like knocking out her two front teeth, led to astonishing highs, such as Brene Brown re-Tweeting her blog post about the experience, shaped the course of her life, leading her on a mission to turn strangers to friends via the power of discovery through storytelling. Based on her own transformation, from a 19-year old diagnosed with Multiple Sclerosis, who lost 2 best friends in separate car accidents, to becoming a fearless optimist who turns strangers into friends, Carlyn Shaw is a testament to the words, “Life doesn’t happen to you, but rather, for you. Fueled by her misfortunes, Carlyn shifted her perspective, choosing to plant her feet all over the planet! She’s ttekked Machu Picchu, backpacked Australia while working for a non-profit, and likes to say she’s, “eaten her way through Thailand”. After a freak bike accident in 2013 left her without two front teeth, Carlyn chose to “rock out with her teeth out,” inviting the power of perseverance and her smile to shine. Carlyn routinely receives emails from people around the world, as they see themselves in lessons learned from her journey. Early in her career, utilizing her Journalism Degree, insightful imagination and profound people skills, Carlyn tackled PR for a $60M hotel chain. She later served as a Senior Travel Nurse Recruiter, receiving the annual award, “Most Passionate Recruiter” by her peers. After a job loss in 2010, seeking a means to network, Carlyn created a “Connection Card,” giving herself the title, “Turning Strangers Into Friends”. This simple shift of leading with her authentic self, open the door to people, synchronicity and possibility. Recognizing it was the ‘stories’ connecting us all, Carlyn followed her intuition and founded an in-person community, Strangers To Friends, inviting men and women to share their unique stories, establishing real connections while building self confidence. An inspirational speaker and connection workshop facilitator, Carlyn shares her journey of self-healing, embracing adversity and gaining personal perspective. Additionally, Carlyn is a Transition Coach—supporting individuals to shift their inner dialogue, take action and become their own best friend. Carlyn is a published author in the book, “When I Rise, I Thrive” and has been featured in news outlets including The Denver Post, San Diego Tribune and an appearance on Anderson Cooper’s daytime talk show. She has been a presenter at “Ignite Denver”, a keynote speaker for the Prince of Wales Alaska Marathon and regular speaker at Multiple Sclerosis Society engagements. Carlyn challenges you to let go of what no longer serves you and to say YES to the life you not only want, but you deserve.
Ms. Heidi R. Burkhart is the President of Dane Professional Consulting Group. Formed in 2008, the company specializes in affordable housing brokerage and consulting. Burkhart is a seasoned professional in the real estate industry, and has facilitated the closing in excess of 11,000 affordable housing units totaling well over $1 billion in sales.Prior to forming Dane PCG, Burkhart was a senior director at Eastern Consolidated, New York, NY, where she headed the affordable housing brokerage and investment division. Burkhart was also a financial analyst at Owens Illinois, Toledo, OH. She is on the Board of Directors for Institute for Responsible Housing Preservation (IRHP), the New York State Association for Affordable Housing (NYSAFAH), and Kids Unlimited, Toledo, Ohio.Burkhart is the recipient of The Edward H. Schmidt Outstanding Young Alum Award 2013 from the University of Toledo in recognition of outstanding achievement in her field of endeavor, while providing leadership and noteworthy service to the Alumni Association, University and community. Burkhart has also been awarded the Affordable Housing 2013 Young Leaders Award as one of seven men and women under 40 years of age being recognized for building organizations and ushering in new ways of delivering affordable housing. The Young Leader award was created as a way to help celebrate and support the development of a new generation of leaders.Burkhart is active in her community volunteering with the NYC Rescue Mission, Multiple Sclerosis Society, Single Stop, the New York Ronald McDonald House, Food Bank NYC, Bedford Stuyvesant Restoration Corporation, University of North Carolina Pediatric division, Goodwill, and Habitat for Humanity.Burkhart holds a Bachelors of Business Administration Degree in finance and marketing from The University of Toledo and lives in New York City. For more information visit:http://www.danepcg.com/https://twitter.com/DanePCGhttps://www.facebook.com/Dane-329101647220001/https://www.linkedin.com/in/heidi-burkhart-475216a/
In this episode I interview Josh Baron. Josh survived a vehicle accident 20 years ago where he broke his back. To celebrate the 20th anniversary of the accident he is running 90 kilometres on Saturday, September 6th, 2019 to raise money for the Multiple Sclerosis Society of Canada! Episode Links www.facebook.com/90kUltraRevival The post YEG MS Ep. 48, “Josh Baron; The 90k Ultra Revival” appeared first on Own Multiple Sclerosis.
Method to the Madness host Lisa Kiefer speaks with CALSTAR Yoga program faculty Saraswathi Devi and Claire Lavery about their innovative adaptive yoga class on the UC Berkeley campus that teaches students how to help members of the public with disabilities.TranscriptLisa Kiefer: [00:00:27] You're listening to Method to the Madness. A bi weekly public affairs show on K A L X Berkeley celebrating Bay Area innovators. I'm your host, Lisa Kiefer. And today, I'm speaking with faculty members of CalStar Yoga, a program that helps people with disabilities practice yoga.Claire Lavery: [00:00:51] I'm Claire Lavery.Saraswathi Devi: [00:00:53] And I'm Saraswathi Devi.Lisa Kiefer: [00:00:54] Welcome to the program. And you're both on the faculty of Cal Yoga.Saraswathi Devi: [00:00:58] I guess you could put it that way.Lisa Kiefer: [00:00:59] OK. Well, why don't you tell us about your program?Saraswathi Devi: [00:01:02] Well, we call it CalStar Yoga and at their recreational sports facility, the RSF, there is a little program called CalStar, which serves people who live with different kinds of disabilities and it's open to the public. So our part of that is an adaptive yoga class.Claire Lavery: [00:01:19] The class has been going on since 1996,.Lisa Kiefer: [00:01:22] Since 1996. Is it for just students or.Claire Lavery: [00:01:26] It's open to anyone with a disability in the community or in on campus, on staff, on faculty and any member of the gym or outside the community?, campus community can also join?Lisa Kiefer: [00:01:39] I thought it might be useful for our listeners to know how you define yoga and how you define disabilities.Saraswathi Devi: [00:01:47] Yoga is an ancient practice and it's a lot about body and mind health. It comes from an ancient root, yog, meaning to join. So it's all about balance of body and mind and the quiet aspects of the self and the more assertive aspects of the self. It has a lot to do with exercise, which is how most people in America know it. But it also has to do with mind training, with making your intellect more sharp and your emotions more clear and peaceful. And some people pursue it as a spiritual practice as well.Lisa Kiefer: [00:02:22] And could you define disabilities for this class?Claire Lavery: [00:02:25] We define it as someone who is living with some kind of an ongoing condition that limits their presence, their ability to move in the world. Most of our participants have physical disabilities. We don't work too often with people with intellectual disabilities.Lisa Kiefer: [00:02:44] Are you speaking of autism?Claire Lavery: [00:02:46] Right.Lisa Kiefer: [00:02:46] So you don't service.Claire Lavery: [00:02:48] We've had students with those kinds of disabilities in the class, but they've definitely been in the minority. And it's much more about the people who are living with more physical limitations, people with multiple sclerosis, people with cerebral palsy, people with post stroke syndrome, injury, trauma. So we've had quite a wide range of different kinds of disabilities represented in our class. And people with multiple disabilities are, have been long term members as well.Lisa Kiefer: [00:03:14] I didn't know that this existed, honestly, and I want to know how it got founded. What was the reason behind it? Were you there at the beginning? Well, Saraswathi is the one to tell you.Saraswathi Devi: [00:03:24] Well, I've been practicing and teaching since the mid 70s. And as the years went on in the beginning, in the early days, we just had everybody in class. We would have kids and seniors and people who were injured or disabled. Everybody would just be glommed together.Lisa Kiefer: [00:03:42] On campus?Saraswathi Devi: [00:03:42] No, in the community in Berkeley. I was trained by and served very closely a yoga master from India who lived here part of the year. But then as the years went on, we found ourselves specializing. So I began to teach pre and post-natal yoga and children of all ages and seniors and adults at different levels. And then I found myself partly because I have some of my own disabilities. I found myself very attracted to the whole subject, observing a person who was not typically abled and so found myself to the Multiple Sclerosis Society and other places and began to develop a practice that seemed to be really helping people. And that gradually led me to UC Berkeley, where I was hired. Well, at first at the Hearst Gym and then down at the RSF. Lisa Kiefer: [00:04:28] Did they hear about you and hire you or did you know approach them?Saraswathi Devi: [00:04:31] They did. It's a kind of long, convoluted story. But there was a really forward looking woman working in the RSF who hired me. And what I have tried to do is in serving a person who is living with a profound disability or multiple disabilities, we're trying to offer them a practice that they would never otherwise have access to. So we're taking yoga to a place that you wouldn't imagine it could go, so somebody might not be able to speak or move outside of a power wheelchair, whose body might be contorted or who might be having a lot of involuntary movement and and meeting the whole person. So sometimes a person on the street will see somebody living with a disability and they'll either discount them or not have proper regard and respect for the humanity of that person. They just see a bunch of equipment on a wheelchair. But anybody who comes over the threshold into our class is automatically recognized for their rich humanity and just loved and respected instantly. So what I tried to do is take other disciplines that I recognize as another form of yoga in a way and sort of a broad way of thinking. So I'd like to add massage and acupressure and range of motion and sometimes even using free weights.Lisa Kiefer: [00:05:50] Do you use water?Saraswathi Devi: [00:05:51] No, we're not. I would...Lisa Kiefer: [00:05:53] There are pools here and I thought maybe...Saraswathi Devi: [00:05:53] True. Well, I love aqua yoga and if we had a way of somehow having a pool, we would do it for sure. But we lift people out of their wheelchairs who are not ambulatory. They'll be four or five or six of us carrying a person. Proper word is transfer out of the wheelchair onto the floor and then people who are much more mobile who will arrive in class with mobility aids like a cane or a walker, or even walking on their own in a maybe halting way. They're also in the class, so it's a broad range.Lisa Kiefer: [00:06:28] I can imagine that you've encountered some really beautiful transformations for people who have never experienced this before.Saraswathi Devi: [00:06:36] It's a lot of hard work, but it's a joyful experience for all of us. For the students themselves. For Claire, for me, for our volunteers and for our young undergrads who help us every semester.Lisa Kiefer: [00:06:48] And how many undergrads help you?Claire Lavery: [00:06:50] Well, we have a range. We often have up to 60 or 70 students. They enroll in an undergraduate course that gives them two credits. It's a DeCal course. So they come and help us every week.Lisa Kiefer: [00:07:03] And they learn how?Claire Lavery: [00:07:04] We train them. We supervise them. We keep an eye on them and they blossom. They do wonders. Many of them arrive without any experience. Many of them arrive thinking that they're going to be doing yoga. And we tell them right away that's not the case. But some of them decide that's not for them. Some of them despite their fears or trepidation, stay with us. And just are wonderful helpers.Lisa Kiefer: [00:07:29] Are any of these students disabled that come to you?Claire Lavery: [00:07:31] Yes, some of them are. We've had many students who didn't tell us right away that they had a disability and some are significantly disabled, but would gradually feel safe enough to reveal that. And sometimes they found that they couldn't do the kind of heavy lifting or harder work that we asked them to do. And we are fine with having them help in whatever way they can.Lisa Kiefer: [00:07:54] It seems like they would have the most empathy and understanding of where that person might be.[00:07:59] Sometimes that's true.Lisa Kiefer: [00:08:01] Not always, but.Claire Lavery: [00:08:02] Not always. And many of the students who come have a family member with a disability or an aging family member or have had an injury and and can apply that emotional information to the work that they're doing with the students.Lisa Kiefer: [00:08:14] And how many of your students are Berkeley students and how many are community members generally?Saraswathi Devi: [00:08:21] At the moment, we don't even have one Berkeley student, but we've often had maybe four, three, four or five, maybe a professor or two. But actually the better part of the student population is from the surrounding area.Lisa Kiefer: [00:08:35] Do you do this every semester?Saraswathi Devi: [00:08:36] We do it all year round and we have a summer session.Lisa Kiefer: [00:08:39] OK. Claire, how did you get involved in this?Claire Lavery: [00:08:43] Well, I had started teaching yoga in the mainstream yoga classes here at Cal and had been doing that just for a couple of years. And the same wonderful woman who hired Saraswathi knew me and said, you know, there's this great class that you might like to help with. They're always looking for volunteers.Lisa Kiefer: [00:08:59] Is she still around?Saraswathi Devi: [00:09:00] NO,Suzanne McQuade, she retired. We miss her terribly. Claire Lavery: [00:09:06] Unfortunately, she's not there, but we're trying to keep it going. And she steered me to help out with this class. So I showed up as a volunteer. And I just kind of stayed. I learned a lot.Lisa Kiefer: [00:09:19] It seems so innovative. Do you know of any other programs, anywhere else that are like this or is this unique?Saraswathi Devi: [00:09:25] For a lot of years, we thought we were the only place in the country or maybe beyond. And we're starting to see others somewhat similar programs sprouting up, but we still haven't found anything that that goes as far as we go. And the reason why I say this, once we have the opening of class where we're sitting in concentric circles and doing a little bit of breathing or light meditation, then we will transfer people onto the floor. And then we essentially divide ourselves up into two groups where Claire works with the people who are more ambulatory during that part of the class. And I work with people who are less mobile and. So with the people who are more mobile, they'll be two usually two people serving each of the students and they'll be on the floor. They'll be sitting up. They'll be standing against a wall using chairs and yoga blocks and people's hands and arms and legs to help hold them with good alignment in yoga postures. And that actually draws up the strength and balance and alignment from within the person's body. It's not just an artificial hole. On my side of the room, we're moving people on the floor and forward and backward bending movements and yoga postures that look pretty conventional. But there might be two or even five or six people clustered around each of the students holding them at the shoulder at the low back and stretching their feet. And then we incorporate, as I said, a lot of massage and acupressure and other methods.Lisa Kiefer: [00:10:58] If you're just tuning in, you're listening to Method to the Madness, a bi weekly public affairs show on K A L X Berkeley celebrating Bay Area innovators. Today, I'm speaking with faculty members of CalStar Yoga, a program that helps people with disabilities practice yoga.Saraswathi Devi: [00:11:24] We had a woman who came in the other day and this is a few months ago, and she had been injured rather badly in her back and was able to after her initial rehabilitation, this was probably 20, 15 or 20 years ago, after her initial rehabilitation, she was able to walk at first with a walker and then with a cane. And then she was able to somewhat haltingly walk in a conventional manner. And then as she started to age, gradually, she found herself in a wheelchair. However, it's a manual chair, so she gets around quite nicely. But she came in very suspicious, trepidatious, and frankly, bitter, understandably highly educated, very productive, talented woman. And she was a little resentful, understandably, of of this new loss of full action in her body and and in some ways in her personality and affect and effect. And so came into the class and we tried to humor her and love her and respect her. And then she said to us, I feel transformed. At the end of the first class now, she's a very stalwart member.Lisa Kiefer: [00:12:30] Once you founded this, what were your major challenges in getting this up and running and accepted?Claire Lavery: [00:12:37] We've had challenges. Initially, the class was really only supported by volunteers from the community and Saraswathi would put out messages in the free papers. This was several years ago before there was a big Internet presence, posters and flyers and put out the word on the street asking for people to come and volunteer. And so we struggled along and it would only be maybe five volunteers and we still have about that time, 10, 15, 20 yoga students. So we couldn't have two people working with each yoga student. We didn't have the manpower of a woman person power. So we would revolve. And we'd do some poses as one person and then we'd set them up comfortably and we'd move on to the next. So that was a little difficult. We had a really innovative and wonderful undergraduate volunteer who had a brainstorm in about 2003 and said, we should make this into a DeCal class because then students would get credit and then.Lisa Kiefer: [00:13:30] ..Tell me what a DeCal class is because some people may not know.Claire Lavery: [00:13:33] A DeCal class is an undergraduate led class in the university and there are hundreds of them. They range from things like baking, hip hop music, to electronic engineering theory or more esoteric interests that students in in Cal hold and want to share.Lisa Kiefer: [00:13:52] And there's credit, course credit?[00:13:53] There's course credits. So our student who was interested in social work and in our class really wanted to make this accessible to more calendar grads. He thought they'd be interested. And so he went registered as a DeCal. And he was right. People came. When that happened, we had many more students and we did start to get the numbers of people we wanted to see to really fully support our yoga students. I know Saraswathi's dream is to have 75 students every semester so that we can have a really full bodied support group and we get pretty close sometimes now.Lisa Kiefer: [00:14:29] Do students have to pay to get into this class?Saraswathi Devi: [00:14:32] Yeah, it's a modest fee and they get a little bit of a discount for proving that they they might come in in a wheelchair and not able to speak, but they still are required to bring a doctor verification. That's understandable.Lisa Kiefer: [00:14:43] I wanted to ask you what you think your greatest impacts have been. You've been at this for several years now,.Saraswathi Devi: [00:14:49] Since 1996.Lisa Kiefer: [00:14:50] Yes. So what do you think has been the greatest impacts or accomplishments?Saraswathi Devi: [00:14:55] I think as far as the yoga students, probably the best benefit that they derive from the class is psychological. They feel seen, respected, loved. They are touched. And I don't mean that in any kind of negative way. They're touched in a nurturing and helpful way. And many of them also experienced good physical effects. They're more relaxed. They feel more cheerful. They have better sleep. Sometimes they have a considerable reduction in pain and stiffness. Many of them find that their circulation has improved, their digestion, a whole host of physical benefits. So I would say really in some ways, though, it's more, one of our students who had been coming for some years who is living the after effects of having been assaulted. So he was brain injured. So he asked what we would call TBI, traumatic brain injury. It affects his vision. So he's legally blind, almost completely blind, and his brain somehow recovered quite amazingly. So he has a very sharp mind, but very halting speech. So he has a speech aphasia. So he walks and speaks in a halting manner and uses a cane. So one day he said to us, when I come into this room, I am treated utterly differently from anywhere else that I go. People just see me as a disability and don't see me. So that's a huge part of it. For our yoga students, volunteers, the undergrads, we always at the end of every semester we ask them to write a reflection paper and we'll give them a certain theme, but essentially it's asking them in some way or other to tell us what their experience was and what they derived from it. And many of them, well, undergrads often will try to write to what they think the professor wants to hear. But nevertheless, you can hear a lot of sincerity in it, too. Most of them will say they were, they had never met a disabled person, with a small exception of some of them who do have as Claire said a disabled person in their family. Many of them have never met a disabled person, or if they have or seen people in the community, they've discounted them or really not given them much credence or attention. And then they also will say that they were terrified that they were gonna do something wrong. They didn't want to touch or hurt anybody. And then they started to get to know our students while we're practicing. There's a lot of really fun, gossip and conversation and everybody's giving each other mutual support and mutual interest in each other's lives. And so they discovered that these are full human beings. Some of them are UC grads. As I said, some are professors. They're all incredibly interesting. And so they find their lives utterly transformed. And we've had a small percentage of of them also change their majors. We've had some who decided to be an attorney giving pro bono services to people who were disabled and any number of really interesting trajectories to their story as they moved through the semester and have their their experience transformed. For me, it's impossible to describe. It's each of the people that we serve is an entire universe as it is for any human being. And I've gotten to know almost all of them, at least those who've stayed for many, many years. I've gotten to know them very well. Some of them have become very dear and close friends. So for me, it's it's like seeing the face of all of creation in the eyes of each person. So I feel like it's the huge super consciousness of the universe. Me and this other person in this lovely communication together across all conventional societal membranes, across any way that you might think that there's an encumbrance when you are communicating with someone who is not is typically abled.Lisa Kiefer: [00:18:33] Well, that kind of leads me to the next question, which is when you're doing these movements, do you also provide some sort of a lecture on the philosophy of what you were just talking about, which is, it's so beyond the physical, that we can, you know, reach each other beyond the flesh.Saraswathi Devi: [00:18:52] We do that in a variety of really subtle ways, and we do it increasingly quietly coming in the side door for our young undergrads as the semester goes on, through reading assignments, through the opening in class, where we give them some internal practices and in some other ways. So.Claire Lavery: [00:19:11] I agree. And Saraswathy said it so beautifully. We don't approach them head on. These are skeptical young people and really don't want to be told what to think or how to think. But they do come into class pretty much glazed over and heavy and distracted. And in our opening session, where we do some meditation and some breathing exercises, you can see them visibly relax. And we have had people, undergraduates right in the end of this semester that that meditation session was what transformed their experience and how they've got to understand what we were really doing. Many of them say that they are now going to start doing yoga. Of course, as we've noted, that might just be so that they look good in our eyes. And I do see some of them in my classes, in the mainstream classes. We do have some readings that we ask them to consider. And when we veer from the very technical or practical readings into a little more theory, they're sometimes a little bit at sea. We just had them reading the Bhagavad Gita which is a pretty familiar text to many Westerners, but it's dense and it talks about a lot of mythological people that are not familiar in the Western culture, and that's enough to really put up a wall for many of the students. So when we discuss it, we have to kind of break down and ask them what did they understand? And some of them are just unwilling to engage in that. They want to be, they're scientists, they're practical, they're 21st century kids. So some of them get it from the meditation. Some of them get it from the theory and the Bhagavad Gita. Some of them have their own understanding or practice of yoga that they bring with them. And some have other traditions that are congruent or complementary to the kinds of thoughts that we were just discussing.Saraswathi Devi: [00:21:03] And partly also when we're teaching a technique because they're learning hands on as we go over the semester, we're not training them for weeks. And then we have weekend workshops throughout the semester, several of them. But part of what we're doing, too, is we're helping them to see a link between this kind of beautiful ancient ritual form of exercise and the quietness and focus of mind and emotion that comes to the yoga student who's being served, but also comes to the volunteers who are doing the serving. Because here we are, we're holding a little bit challenging position and we have to breathe slowly. Yes, there is a lot of fun conversation in between. But there's also a lot of slow, deep breathing. And anyone who experiences that kind of breath on a regular basis will find that it has a very focusing effect on the mind and emotions and makes your brain more clear. So one of the things I like to say when we're doing an opening meditation with these undergrads is this will help your memory, your ability to focus and do well on finals. So sometimes that..Lisa Kiefer: [00:22:04] that's kind of a carrot... Saraswathi Devi: [00:22:05] that helps.Lisa Kiefer: [00:22:06] Well, this Igen generation after the millennials is the first to have grown up with so much technology in their lives. Have you been able to monitor the difference in the students you've had over the years since technology has become so prevalent in their lives?Claire Lavery: [00:22:22] We kind of saw a sea change about 10 years ago in the way the attention spans worked. Students are a little, a little antsy at the start of class. They generally settle in and they can focus. They're intelligent and they're used to working hard and intellectually hard. But they're not always used to working emotionally hard or are focusing in a more subtle way. We do have them take their phones out, turn them off and put them on the side of the room for class. And that's challenging for a lot of them.Saraswathi Devi: [00:22:52] we have a little bit of fun with that.Lisa Kiefer: [00:22:55] Probably helps them in school. What you're doing?Saraswathi Devi: [00:22:58] They've said that. Yeah. So we all benefit everybody. And they. One of the things that they will say to us often is this was a great ending of my school week. I've left class feeling really refreshed and ready for the weekend.Lisa Kiefer: [00:23:12] Do you have anything else going on that you want to tell us about coming up?Saraswathi Devi: [00:23:16] People have been asking Claire and me in all of the different universes that she and I both live in. Asked if we would please do a teacher training. So we're in the very, very first steps of organizing that. And we're going to do it collaboratively between the two of us and a third person who has been an on and off volunteer with us, who's very talented. So we're just in the beginning stages of formulating that. And then we have to do outreach and funding and all of that.Lisa Kiefer: [00:23:42] And where do you see this heading out to?Saraswathi Devi: [00:23:43] We'd like to serve other yoga teachers who are interested to make a foray into this universe. And many of them, most of them have not. They couldn't even imagine it. And we'd also like to find ways of influencing and giving some practical strategies to someone who's a family member or a caregiver who could help someone with a disability at home.Lisa Kiefer: [00:24:06] It sounds like you've got a lot of data over the years that you maybe collected?Saraswathi Devi: [00:24:10] We do. It's it's very informal, but yeah.Lisa Kiefer: [00:24:13] Still, that's very valuable. I would think from a lot of different people it would be of value. Are you going to put together guidelines, like a book?Saraswathi Devi: [00:24:22] There will be our training manual. Yeah. Okay. And it may end up and we'll see. Claire, we're both so busy, but it may end up that we'll have satellite programs that will come from that where we'll we'll start with a basic teacher training and then we may find that we'll do some specialty as an extra specialty training over there. You might do some kind of weekend workshopy kinds of things. We haven't figured it all out. Yes. But it's something that we really we have a responsibility to do. We need to share it more widely than just here.Claire Lavery: [00:24:53] We would like to have medical professionals in our trainings that would learn a different way to communicate and work with the people they see on a very regular basis.Lisa Kiefer: [00:25:03] Are you talking about physical therapists?Claire Lavery: [00:25:05] Physical therapists, doctors, nurses, nurse practitioners, the whole spectrum. We want them to be aware that this is an alternative to the very strict regime of drugs and hope.Saraswathi Devi: [00:25:17] You know, we have the father of one of our students who lives with cerebral palsy one time said to me, what you're doing here is much better than most of the doctoring my daughter is ever going to receive. He's a physician. I thought that was maybe a little dramatic, but actually in a lot of cases, I'm sure it's quite true.Lisa Kiefer: [00:25:34] If somebody is interested in the community, whether that's a student or a regular person out there, how would they get a hold of you? Do you have a Web site? And how can they help you or join up?Saraswathi Devi: [00:25:47] One way is to contact the RSF, the recreational sports facility, on the UC Berkeley campus on Bancroft at Dana. And it's right near the student union.Lisa Kiefer: [00:25:58] Is that reachable via the Web?Claire Lavery: [00:26:00] There is an online website presence under CalStar. So if you look under recreational sports and there's a drop down menu and you'll have to look, I think it's under group exercise or you can type in the search bar. CalStar, one word C-A-L-S-T-A-R and that's the program. And if you write CalStar yoga, it should bring you to the page that describes our class.Lisa Kiefer: [00:26:24] And if people wanted to volunteer, it's the same. It is the same place you go to the same place, whether you want to volunteer or take the class.?Claire Lavery: [00:26:32] Right. And in either case, if you're interested in volunteering or in being a student, you could drop in to one of our Friday afternoon classes and just see the first class.Lisa Kiefer: [00:26:41] And where are those classes located? Where would they go?Claire Lavery: [00:26:44] They're in the RSF, the main gym on campus at Bancroft Way. They're in the combatives room, which is unfortunate for a yoga class. It's on the first floor. You'll have to tell the guard at the gate that you're going to CalStar Yoga and they'll let you in and you'll walk down the hall. It's the last door on your left.Lisa Kiefer: [00:27:00] And how long are your sessions, generally?Claire Lavery: [00:27:01] We meet from 1:30 to 3:30 Friday afternoons every week.Saraswathi Devi: [00:27:06] I like sometimes for someone who's inquiring, who might be interested. Who really wants a description of the class beforehand. Some people like to just jump in. Everybody has a different way. I would be happy to give my email address if somebody wanted to contact me. I would be very pleased to describe the program and just try to light a little psychological fire in the person. So it's info@yogalayam.org. I teach and live in a yoga and meditation center. So yogalayam is all one word spelled y o g a l a y a m.org.Claire Lavery: [00:27:42] And it is a good idea before joining the class, especially as a yoga student, to communicate with us so that we can both understand what you are going to experience.Lisa Kiefer: [00:27:52] Before we leave today, I wanted to ask you what advice you might give someone before they start this program.Saraswathi Devi: [00:27:59] And I believe you're talking about people who would come in as a volunteer and also people who would come in as a yoga student. I would say for the volunteers, please come with an open mind and realize that you will probably learn more than you thought you could and that you will enjoy what you're doing and feel a certain psychological upliftment that you might not ever have imagined you could. For the yoga students, again, I would ask the person to come to the class with an open mind and see if they feel like it's a good fit and give themselves a chance, coming even more than once to see how we can stretch the practice to accommodate anyone's needs.Claire Lavery: [00:28:42] I would also just advise everyone who comes to come with an open heart and to be open to the transformations that might not feel familiar.Lisa Kiefer: [00:28:54] It seems like this is such a valuable experience for anyone of any age to to take part.Saraswathi Devi: [00:29:01] I would say the human body, mind and heart have an amazing ability to survive. If you find yourselves, caught yourself, compromised in some way. If you're not able to garner all of the themes and abilities and structures and functions that you typically have or used to have, other people can come in and make up some of that difference. They can support you not only physically with their hands, but really, I would say psycho spiritually surrounding you and helping you to find and sustain what is profound and essential in yourself. Even if you can't do it all by yourself.Claire Lavery: [00:29:43] I can say from my experience, I am an able bodied yoga instructor. I have been fortunate to be fairly strong and healthy. I get so much out of this class. I get emotionally an uplift. I get a calming effect. I get love. And I'm a cynical New Yorker, so it works for me.Lisa Kiefer: [00:30:07] Well, I want to thank you both.Claire Lavery: [00:30:08] Thank you so much for having me.Saraswathi Devi: [00:30:09] Thank you very, very much.Lisa Kiefer: [00:30:16] You've been listening to Method to the Madness, a bi weekly public affairs show on KALX Berkeley celebrating Bay Area innovators. You can find all of our podcasts on iTunes University. We'll be back again in two weeks. 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We begin this jam-packed episode by chatting with Angela Con about the spring concert of the Peterborough New Horizons Band. Proceeds of the concert will go to the local Multiple Sclerosis Society. Angela is a member of both. Next, Devon speaks with budding artist Lynda Todd about her upcoming show and sales. Finally, Devon speaks […]
Thank you for listening to Mormon Sex Info. This episode is an archived episode and is only now becoming publicly available. Mormon Sex Info relies on contributions. To contribute, please visit: mormonsex.info Please enjoy the episode. Natasha Helfer Parker interviews Aimee Heffernan, LMFT in regards to achieving what can at times seem like the elusive female orgasm. They cover all types of topics from psychological aspects that can get in the way of climax, to specific techniques that women and their partners can find helpful. What ruts can we get stuck in either in regards to sexual practice or sexual meaning? How does self-pleasure and self-exploration begin a self knowledge that can translate to orgasmic potential? How can using a vibrator help achieve orgasm? Does the G-Spot exist? What about multiple orgasms? What is squirting? How do we improve our communication skills around these types of conversations? head shot webAimee Heffernan grew up in Salt Lake City in a very open-minded, unorthodox, feminist, Mormon home. She was raised with the beautiful aspects of Mormon theology balanced with the nuance and complicated parts church history. Aimee attended Western Washington University in Bellingham, WA before she went on her mission to Sendai, Japan. She graduated from the University of Utah with a degree in Sociology and with a masters degree from Seattle Pacific University in Marriage and Family Therapy. Aimee has a private practice in Redmond, WA, where she specializes in relationships, infidelity, sexuality, faith/spirituality crisis and transitions, mixed faith marriages, women’s issues, self-esteem and identity. She is a trained educator for the Gottman Bringing Baby Home program. She is currently working towards becoming a certified sex therapist through AASECT. Aimee has presented for the NW Chapter of the Multiple Sclerosis Society, local schools, more church functions than she can count, and enjoys speaking about mental, emotional, and sexual health. Resources mentioned during the podcast: My Official Stance on Masturbation blog post by Natasha Helfer Parker How Can I Go to the Temple if I’m Still Masturbating blog post by Natasha Helfer Parker Kristin Hodson featured on Episode 1: Porn Addiction: Is It Real? LDS Female Sexuality with Jennifer Finlayson-Fife on Mormon Mental Health Podcast OMGYES Kinsey Institute Sex + w/ Laci Green Sexplantions with Dr. Doe Lovers Blue Boutique located in Salt Lake City Sex toy called Double Trouble Other Resources: Sex Smart Films: Promoting Sexual Literacy The Clitoris: A Complete Sex Guide Babeland
We begin by chatting with three volunteers from Parkinson Canada – Joe Vankoeverden from the Peterborough Chapter, Sandie Jones and Maria Mariano from Toronto. Next, we chat with Christine Annett, one of the fundraising ambassadors for The Multiple Sclerosis Society of Canada.
On this week's episode Ric and Larry sit down with Mr. Micah Love and Mr. Jeff Lewis National Advocates for the Multiple Sclerosis Society. These gentlemen share their experiences about not only being diagnosed and living with MS but also what it takes to thrive and be successful while overcoming the disease.Are you moving to Houston? The "Right To Purchase Program" may be perfect for you. Click on the link below to learn more.http://bit.ly/PRNright2buy
Dr. Sudeep Mohandas Co-Founder/Managing Director of I First International speaks to Madam Padma about the Multiple Society she had founded and its challenges associated with financials to the patient and the organisation.
Multiple sclerosis (MS) is a central nervous system disorder that an estimated 2.3 million people around the globe live with. To help us understand this often unpredictable condition and life with it, we interview Alexandre Guedes da Silva, the director and vice-president of Multiple Sclerosis Society of Portugal (SPEM). SPEM is a member organization of the broader European Multiple Sclerosis Platform (EMSP), an association founded in 1989 in order to make sure the patients with multiple sclerosis diagnosis have a voice in determining health policies and research goals on the European level. Currently, the platform relies on “a growing network of 40 member societies in 35 European countries”. Engineer by profession, Silva is not only an advocate trying to raise awareness about the disorder, but also a patient himself, living with remitting-relapsing MS for decades. Answering Kim’s and Alessia’s questions, he shares his personal experience with MS symptoms and thoughts on what society could do about the quality of life among patients with MS, while also touching upon the current ideas about what causes MS. Kim Baden-Kristensen is the co-founder and CEO of Brain+, a digital therapeutics company that helps people with brain disorders and injuries to recover their fundamental cognitive brain functions and daily life capabilities by using an app-based cognitive rehabilitation platform, which is developed in close collaboration with patients, clinicians and researchers. https://www.linkedin.com/in/kbadenk/ Alessia Covello is a life science IT consultant working in the field of healthcare technology implementation, and advocating for better services for people with brain conditions and learning disabilities. https://www.linkedin.com/in/alessiacovello/ Talking points: ● Multiple Sclerosis - basic information (min. 3:35-10:10)- What if the multiple sclerosis diagnosis arrives too late? (5:15)- Current theories and different forms of the disease (6:10) - Phases of the disease (8:05)● How it begins and how difficult it is to diagnose MS (min. 10:35 - 17:00)● Living with multiple sclerosis symptoms - situations to avoid (min. 17:20-26:30)● Available treatments and the role of EMSP (min. 26:45-32:00)● Possibilities for neurorehabilitation and similarities between dementia and MS (min. 32:10-35:20) ● Digital technologies and robotics as assistive technologies for patients with MS: improving the quality of life through widespread communication technologies (min. 35:27-39:40) ● Improving research and data-collection (min. 39:50-42:40) ● Distribution of MS - geographic, genetic, and lifestyle factors (min. 42:55-48:45)● Overall quality of life: Physical rehabilitation, job adaptations, personalized approach (min. 48:55-51:10)● Take-home messages for researchers, clinicians, and patients (min. 51:20) Disclaimer:All references to products, companies, and organizations in this podcast and the article that accompanies it are included with the purpose to inform, rather than promote or advertise. The podcast authors do not receive financial compensation for any of these references.
The boys end up in the jungle with varying degrees of immunological protection and Chris subdues a jungle cat. So what are the arguments against vaccination and are they warranted? They discuss arguments like better sanitation, Big Pharma conspiracies, aborted fetuses, autism, chemical preservatives and “too many, too soon”. In a surprising twist, the Catholic Church comes to their defence. Also: Jacob Meza sees a big difference in how young and old people view vaccines; the world's first genetically edited babies are here (maybe); and the Multiple Sclerosis Society of Canada recommends people with the disease up their dosage of vitamin D. Vox pop by Jacob Meza of the So It Is Told podcast. Jingle by Joseph Hackl. Additional music by Seth Donnelly and Kevin MacLeod. Theme music: "Troll of the Mountain Swing" by the Underscore Orkestra. To contribute to The Body of Evidence, go to our Patreon page at: http://www.patreon.com/thebodyofevidence/. Patrons get a bonus show on Patreon called “Digressions”! Check it out!
Directing Studio Feature Films in Hollyweird with Demian LichtensteinToday's guest is director Demian Lichtenstein. I had the pleasure of being on a panel with Demian at a film festival a few weeks ago. His generous approach to sharing his experience, knowledge and Hollywood war stories was breathtaking. I had to have him on the show to drop some knowledge and truth bombs on the IFH Tribe.Demian has amassed a vast body of work in the music video industry since receiving his BFA from New York University in 1988, leading to his current status as a feature film director. Some past projects include directing Music Videos for Sting & Eric Clapton, Grandmaster Caz, Shabba Ranks, Queen Latifah, West of Eden (Best Independent Video/MTV 1987), Cypress Hill, Gloria Estefan, Sony, Warner Bros, Columbia Pictures, MCA, Epic, Island, Atlantic, Tommy Boy, IRS Records, World Hunger Project, and the Multiple Sclerosis Society.Demian is a member of the DGA (Director's Guild of America) and was Chairman of the New York Independent Film Coalition for two years and has directed, produced, written, photographed, taped and/or recorded audio on over 225 features, short films, music videos, commercials, and concerts.He also shadowed James Cameron on the set of Avatar for a bit but we'll get into that as well. Enjoy my conversation with Demian Lichtenstein.
The Women Against MS (WAMS) Luncheon is an annual networking event in support of one of Canada's leading health charities, the Multiple Sclerosis Society of Canada.In addition to raising funds for MS research and support, the WAMS Luncheon is an excellent networking event that provides table purchasers and sponsors high profile exposure. The luncheon attracts leading professionals and organizations from a wide range of industries in support of the movement to end MS. Guest: Tania Vrionis - MS Society's BC & Yukon Division president
Jeff and Faith discuss the good, bad, and ugly of the trivia world. Trivial Pursuit? They tackle it. Jeopardy? YOU BETCHA! Quiz Bowl? You know it! Jeff's "The Office" knowledge is also put to the test. In a special before the show interview, Jeff sits down with Big Dam Horns guitarist Clayton Aronowitz to discuss Jointstock 2017, a music and comedy festival that benefits the Multiple Sclerosis Society.
Show description/summary:1) Evaluating the safety of beta-interferons in multiple sclerosis 2) Neurology® Today: New Classifications of Seizures and Epilepsies Include New Seizure Types, Simpler TermsThis podcast begins and closes with Dr. Robert Gross, Editor-in-Chief, briefly discussing highlighted articles from the June 13, 2017 issue of Neurology. In the first segment, Dr. Michael Levy talks with Dr. Helen Tremlett and Dr. Hilda De Jong about their paper on evaluating the safety of beta-interferons in multiple sclerosis. In the next part of the podcast Dr. Nathan Fountain focuses his interview with Dr. Robert Fisher on the new classifications of seizures and epilepsies presented by the International League Against Epilepsy. Disclosures can be found at Neurology.org.DISCLOSURES:Dr. Levy serves on advisory boards for Asterias, Chugai, and Alexion; serves as Editorial Board member of Multiple Sclerosis and Related Disorders; holds patents for an aquaporin-4 sequence that elicits pathogenic T cell response in animal model of neuromyelitis optica, and for use of a peptide for diagnostic and therapeutic developments; has consulted for Guidepoint Global, Gerson Lehrman Group, and Cowen Group; and has received research support from Viropharma/Shire, Acorda, ApoPharma and Sanofi, Genzyme, Alnylam, Alexion, Terumo BCT, National Institute of Neurological Diseases and Stroke, and Guthy-Jackson Charitable Foundation.Dr. Tremlett has served on scientific advisory boards for US National MS Society and the Centers for Disease Control and Prevention; is the Canada Research Chair for Neuroepidemiology and Multiple Sclerosis; has received research support from the National Multiple Sclerosis Society, the Canadian Institutes of Health Research, Canada Foundation for Innovation, the Multiple Sclerosis Society of Canada, US National Multiple Sclerosis Society, Multiple Sclerosis Scientific Research Foundation, Michael Smith Foundation for Health Research, and the UK MS Trust; has received speaker honoraria and/or travel expenses to attend conferences from the Consortium of MS Centres, the National MS Society, ECTRIMS, the Chesapeake Health Education Program, US Veterans Affairs, Novartis Canada, Biogen Idec, American Academy of Neurology.Dr. Fountain is an epileptologist at the University of Virginia Comprehensive Epilepsy Program (100% effort).All other participants report no disclosures.
Dr. Terry Wahls is a clinical professor of medicine at the University of Iowa, Carver College of Medicine and a leader in functional medicine. Terry singlehandedly changed the way the medical establishment, specifically the Multiple Sclerosis Society looks at treating chronic and autoimmune disease. Now, with her guidance, they consider diet to be a leading factor in treatment and recovery. She is known to say “the most radical thing you can do for your health is learn to cook.” And her research proves it. She also credits the importance of stress management and meditation and spirituality as a key component of that. Dr. Wahl has made it her mission to spread the word about The Wahls Protocol and her own inspirational story of recovery through her TEDx talk, which has received more than two millions hits. She is the author of several books including The Wahls Protocol and her new release,THE WAHLS PROTOCOL COOKING FOR LIFE. Visit http://terrywahls.com/ Get the Off the Grid Into the Heart CD by Sister Jenna. Like America Meditating on FB. Visit our website at www.americameditating.org. Download our free Pause for Peace App for Apple or Android
Dr. John H. Noseworthy is president and chief executive officer of Mayo Clinic, a not-for-profit organization operating in five states that is dedicated to medical care, research and education. Every year, more than a million people from all 50 states and nearly 150 countries come to Mayo Clinic for care. Prior to his current appointment, Dr. Noseworthy served as chair of Mayo Clinic’s Department of Neurology, medical director of the Department of Development, and vice chair of the Mayo Clinic Rochester Executive Board. During his tenure as CEO, Dr. Noseworthy and his leadership team have implemented a plan to ensure that Mayo Clinic remains a trusted resource for patients amid a rapidly changing healthcare environment – extending Mayo’s mission to new populations, providing care through more efficient delivery models, and increasing the personalization and immediacy of health care for all people. Examples of new initiatives include a proton beam cancer therapy program with two treatment centers – one in Phoenix and one in Rochester, Minn. – and development of a Mayo Clinic-affiliate network of high-quality medical practices throughout the country. Dr. Noseworthy is a professor in the Department of Neurology. He specialized in multiple sclerosis and spent more than two decades designing and conducting controlled clinical trials with generous support from the Medical Research Council of Canada, the Multiple Sclerosis Society of Canada, the National Multiple Sclerosis Society (USA) and the National Institutes of Health. Dr. Noseworthy also is the author of more than 150 research papers, chapters, editorials and several books, including the three-volume textbook Neurological Therapeutics: Principles and Practice now in its second edition. He also served as editor-in-chief for Neurology, the official journal of the American Academy of Neurology. Born in Melrose, Mass., Dr. Noseworthy received the M.D. degree from Dalhousie University in Halifax, Nova Scotia, Canada. He completed his neurology training at Dalhousie University and the University of Western Ontario, and a research fellowship at Harvard Medical School. He joined Mayo Clinic in 1990. He has received the Alumnus of the Year award from Dalhousie University (2005), an honorary doctorate of science degree from the University of Western Ontario (2012), an honorary doctorate of laws from Dalhousie University (2015). Dr. Noseworthy was named an Officer of the Order of the Orange-Nassau (2015) and received the Research!America, Geoffrey Beene Builders of Science Award (2016). He is a Health Governor of the World Economic Forum. Dr. Noseworthy and his wife, Patricia, have two sons, Peter and Mark.
1) Statin pretreatment is associated with better outcomes in large-artery atherosclerotic stroke2) e-Pearl topic: Fatal familial insomnia3) Topic of the month: Pediatric multiple sclerosis This podcast for the Neurology Journal begins and closes with Dr. Robert Gross, Editor-in-Chief, briefly discussing highlighted articles from the print issue of Neurology. In the second segment Dr. Andy Southerland interviews Dr. Georgios Tsivgoulis about his paper on how statin pretreatment is associated with better outcome in large-artery atherosclerotic stroke. Dr. Steve O'Donnell is reading our e-Pearl of the week about fatal familial insomnia. In the next part of the podcast Dr. Ruth Ann Marrie interviews Dr. Emmanuelle Waubant about the topic of vitamin D in pediatric multiple sclerosis. DISCLOSURES: Dr. Southerland serves as Podcast Deputy Editor for Neurology; serves as Clinical Research Advisor for Totier Technologies, Inc.Dr. Tsivgoulis serves as Associate Editor for Neurosonology; serves as an editorial board member of Journal of Neuroimaging; and receives research support from the European Regional Development Fund.Dr. O'Donnell serves on the editorial team for the Neurology Resident and Fellow Section.Dr. Marrie serves as an editorial board member of Neurology and Multiple Sclerosis Journal; receives research support for clinical trials from Sanofi-Aventis, from the Canadian Institutes of Health Research, Research Manitoba, from Multiple Sclerosis Society of Canada and the National Multiple Sclerosis Society, from Multiple Sclerosis Scientific Foundation and from Consortium of Multiple Sclerosis Centers; received research support from the Public Health Agency of Canada.Dr. Waubant serves on the scientific advisory board for Novartis; serves as an editorial board member of Annals of Clinical and Translational Neurology; is an ad hoc consultant for Roche and MedDay; received funding for travel for one educational physician lecture from Genentech, Inc.; receives royalties from the publication of the book Demyelinating disorders of the central nervous system in childhood; receives research support for trials of ocrelizumab in PPMS (Roche), and fingolimod in pediatric MS (Novartis); receives research support from the National Multiple Sclerosis Society, the Race to Erase MS and NIH.
1) Metabotropic glutamate receptor type 1 autoimmunity: Clinical features and treatment outcomes2) What's Trending: Editorial on if stress could cause a stroke3) Topic of the month: Pediatric multiple sclerosis This podcast for the Neurology Journal begins and closes with Dr. Robert Gross, Editor-in-Chief, briefly discussing highlighted articles from the print issue of Neurology. In the second segment Dr. Kathryn Nevel interviews Dr. Andrew McKeon about his paper on clinical features and treatment outcomes of metabotropic glutamate receptor type 1 autoimmunity. Dr. Ted Burns is interviewing Dr. Jennifer Majersik for our “What's Trending” feature of the week about her editorial on if stress could cause a stroke. In the next part of the podcast Dr. Ruth Ann Marrie interviews Dr. Ann Yeh about the topic of exercise in pediatric multiple sclerosis. DISCLOSURES: Dr. McKeon receives research support from Medimmune, Inc.Dr. Ted Burns serves as Podcast Editor for Neurology; and has received research support for consulting activities with UCB, CSL Behring, Walgreens and Alexion Pharmaceuticals, Inc.Dr. Majersik serves as an editorial board member of Neurology; and receives research support from the NIH.Dr. Marrie serves as an editorial board member of Neurology and Multiple Sclerosis Journal; receives research support for clinical trials from Sanofi-Aventis, from the Canadian Institutes of Health Research, Research Manitoba, from Multiple Sclerosis Society of Canada and the National Multiple Sclerosis Society, from Multiple Sclerosis Scientific Foundation and from Consortium of Multiple Sclerosis Centers; received research support from the Public Health Agency of Canada.Dr. Yeh perform multiple sclerosis relapse adjudication for ACI services on a fee-for-service basis; serves as an editorial board member of Neurology; receives research support from the Canadian Institutes of Health Research, Patient-Centered Outcomes Research Institute, MS Monitoring system pilot funding, National MS Society, MS Society, Dairy Farmers of Ontario, SickKids Innovation Fund, MS Research Foundation (Canada), and Rare Diseases Foundation.
1) Neurology® Neuroimmunology & Neuroinflammation: Therapy with natalizumab is associated with high JCV sero-conversion and rising JCV index values 2) What's Trending: Interviews with Sandi Moriarity and Andy Lucas about their positions and responsibilities with the Neurology podcasts3) Topic of the month: Pediatric multiple sclerosis This podcast for the Neurology Journal begins and closes with Dr. Robert Gross, Editor-in-Chief, briefly discussing highlighted articles from the print issue of Neurology. In the second segment Dr. Melanie Ward interviews Dr. Nicholas Schwab about his Neurology: Neuroimmunology & Neuroinflammation paper on therapy with natalizumab and how it is associated with high JCV sero-conversion and rising JCV index values. Dr. Ted Burns is interviewing Sandi Moriarity and Andy Lucas for our “What's Trending” feature of the week about their positions and responsibilities with the Neurology podcast. In the next part of the podcast Dr. Ruth Ann Marrie interviews Dr. Brenda Banwell about the topic of diagnosis of pediatric multiple sclerosis and acute disseminated encephalomyelitis.DISCLOSURES: Dr. Schwab received funding for travel expenses from Biogen Idec; received speaking honoraria from Novartis; has a patent for Usage of L-selectin as predictive marker for progressive multifocal leukoencephalopathy; and receives research support from the Deutsche Forschungsgemeinschaft German Research Foundation and University Münster, IMF.Dr. Ted Burns serves as Podcast Editor for Neurology; and has received research support for consulting activities with UCB, CSL Behring, Walgreens and Alexion Pharmaceuticals, Inc.Sandi Moriarity is Senior Production Editor, Neurology.Andy Lucas is Audio-Visual Administrator, American Academy of Neurology.Dr. Marrie serves as an editorial board member of Neurology and Multiple Sclerosis Journal; receives research support for clinical trials from Sanofi-Aventis, from the Canadian Institutes of Health Research, Research Manitoba, from Multiple Sclerosis Society of Canada and the National Multiple Sclerosis Society, from Multiple Sclerosis Scientific Foundation and from Consortium of Multiple Sclerosis Centers; received research support from the Public Health Agency of Canada.Dr. Banwell serves as an editorial board member of Neurology and Multiple Sclerosis and Related Disorders; serves on the scientific advisory board for Biogen Idec, Sanofi-aventis, Eli Lilly and Company, Novartis; served as a consultant to Biogen Idec, Eli Lilly and Company, Sanofi-aventis; spoken at an event supported by the Consortium of MS Centers; receives research support from the Multiple Sclerosis Society of Canada, Multiple Sclerosis Scientific Research Foundation, and the National Multiple Sclerosis Society.NO CME WILL BE OFFERED THIS WEEK.
According to the Multiple Sclerosis Society, over 2.3 million people worldwide are living with the disease. Join your national award-winning family radio talk show Let's Talk America with Host Shana Thornton as it spotlights life with multiple sclerosis. Celebrity advocates Jack Osbourne and Miss Kentucky 2014 Ramsey Carpenter join the show to share their own personal experiences with the disease. Also, celebrated stylist Jeannie Mai and medical expert Dr. Lori Mayer talk exclusively to Shana about feeling beautiful with multiple sclerosis. Lastly, trendsetter Grant Verstandig reveals the latest technology in the health arena. Join us! Please visit www.letstalkamericawithshanathornton.com today. Thank you.
1) Long-term safety and effectiveness of natalizumab for re-dosing and treatment of multiple sclerosis and 2) Topic of the month: Plenary sessions AAN Meeting April 2014. This podcast for the Neurology Journal begins and closes with Dr. Robert Gross, Editor-in-Chief, briefly discussing highlighted articles from the print issue of Neurology. In the second segment Dr. Ruth Ann Marrie interviews Dr. Paul O'Connor about his paper on long-term safety and effectiveness of natalizumab for re-dosing and treatment of multiple sclerosis. Dr. James Addington is reading our e-Pearl of the week about inclusion body myositis. In the next part of the podcast Dr. Alberto Espay interviews Dr. James Bernat about his Presidential Lecture at the AAN Meeting about challenges to ethics and professionalism facing the contemporary neurologist. The participants had nothing to disclose except Drs. Marrie, O'Connor, Addington, Espay and Bernat.Dr. Marrie serves on the editorial board for Neurology® and Multiple Sclerosis Journal; receives research support from Sanofi-aventis, Canadian Institutes of Health Research, Public Health Agency of Canada, Multiple Sclerosis Society of Canada, National Multiple Sclerosis Society, Multiple Sclerosis Scientific Foundation and Consortium of Multiple Sclerosis Centers.Dr. O'Connor served on the editorial advisory board of the MS Journal; serves on the scientific advisory board for Novartis, Sanofi-aventis, Bravo Pharmaceuticals, Genentech, Inc., Roche and Actelion Pharmaceuticals Ltd; is a consultant for Biogen Idec, Teva Pharmaceutical Industries Ltd., Sanofi-aventis and Novartis; received funding for travel to advisory board meeting in Toronto; receives research support from Novartis, Sanofi-aventis, Roche, Biogen Idec and as National Scientific and Clinical Advisor to the MS Society of Canada. Dr. Addington serves on the editorial team for the Neurology® Resident and Fellow Section. Dr. Espay serves as an Associate Editor of Movement Disorders, Frontiers in Movement Disorders and Journal of Clinical Movement Disorders; serves as an editorial board member of Parkinsonism and Related Disorders and The European Neurological Journal; receives royalties for publications of books from Lippincott, Williams & Wilkins and from Cambridge University Press; serves on the scientific advisory board for Solvay Pharmaceuticals, Inc. (now Abbvie), Chelsea Therapeutics, Teva Pharmaceutical Industries Ltd., Impax Pharmaceuticals, Merz, Pfizer Inc, Solstice Neurosciences, LLC, Eli Lilly and Company, US WorldMeds; is a consultant for Chelsea Therapeutics, Solvay Pharmaceuticals, Inc. (now Abbvie); serves on the speakers' bureaus of Novartis, UCB, Teva Pharmaceutical Industries Ltd., American Academy of Neurology, Movement Disorders Society; receives research support from CleveMed/Great Lakes Neurotechnologies, Michael J. Fox Foundation and the NIH.Dr. Bernat serves as an unpaid editorial board member of Neurocritical Care, Neurology Today, and Multiple Sclerosis and Related Diseases; a paid editorial board member of The Physician's Index for Ethics and Medicine; and receives royalties from the publication of the books Ethical Issues in Neurology, 3rd ed, Palliative Care in Neurology, and Ethical and Legal Issues in Neurology.
1) Effects of cannabis on cognition in patients with multiple sclerosis and 2) Topic of the month: Critical care neurology. This podcast for the Neurology Journal begins and closes with Dr. Robert Gross, Editor-in-Chief, briefly discussing highlighted articles from the print issue of Neurology. In the second segment Dr. Alex Menze interviews Dr. Anthony Feinstein about his paper on the effects of cannabis on cognition in patients with multiple sclerosis. Dr. James Addington is reading our e-Pearl of the week about spinal dural arteriovenous fistula. In the next part of the podcast Dr. Mike Brogan interviews Dr. Claude Hemphill about the management of intracranial hypertension. The participants had nothing to disclose except Drs. Feinstein, Addington and Hemphill.Dr. Feinstein serves as an editorial board member of Multiple Sclerosis and African Journal of Psychiatry; receives royalties from the publication of the book The Clinical Neuropsychiatry of Multiple Sclerosis; performs neuropsychiatric evaluation, cognitive testing, brain imaging in neuropsychiatry clinical practice; receives research support from Biogen Idec, Canadian Institute of Health Research, Multiple Sclerosis Society of Canada and University of Toronto; received honoraria for lectures from Merck Serono, Novartis and Teva Pharmaceutical Industries Ltd.Dr. Addington serves on the editorial team for the Neurology® Resident and Fellow Section. Dr. Hemphill serves as an editorial board member of Neurocritical Care; holds stock options for serving on the scientific advisory board for Ornim Medical; receives research support from Cerebrotech Medical; funding as PI for hub site for Neurological Emergencies Treatment Trials Network; received a one-time speaking honorarium from Besins Critical Care, LLC and honoraria from Edge Therapeutics, Inc. for consulting; gave expert witness review and testimony on various cases related to stroke and neurocritical care.
1) Dementia management quality measures and 2) Topic of the month: Multiple sclerosis therapy and treatment. This podcast for the Neurology Journal begins and closes with Dr. Robert Gross, Editor-in-Chief, briefly discussing highlighted articles from the print issue of Neurology. In the second segment Dr. Jeff Burns interviews Dr. Amy Sanders about her paper on dementia management quality measures. Dr. Adam Numis is reading our e-Pearl of the week about Leber's hereditary optic neuropathy. In the next part of the podcast Dr. Mark Keegan interviews Dr. Alasdair Coles about alemtuzumab treatment of multiple sclerosis. The participants had nothing to disclose except Drs. Burns, Sanders, Numis, Keegan, and Coles.Dr. Jeff Burns serves on the editorial board for Journal of Alzheimer's Disease; receives royalties for the publications of Early diagnosis and treatment of mild cognitive impairment and Dementia: An atlas of investigation and diagnosis; is a consultant for PRA International and receives research support from the NIH, Alzheimer's Drug Discovery Foundation, Elan, Janssen Pharmaceuticals Inc., Wyeth, Pfizer Inc, Novartis Pharmaceuticals Ltd, Danone, Avid Radiopharmaceuticals, Merck Serono and for clinical trials.Dr. Sanders is a member of a federal advisory committee (MEDCAC); received honoraria for serving on peer-review panels from the CMMI and PCORI; and research support from the Einstein CTSA Grant from the National Center for Research Resources, a component of the NIH and NIH roadmap for Medical Research; loan repayment support from LRP/NIA. Dr. Numis serves on the editorial team for the Neurology® Resident and Fellow Section. Dr. Keegan serves as Chief Editor of eMedicine and receives research support from Terumo BCT.Dr. Coles is a co-editor of Advances in Clinical Neuroscience and Rehabilitation; serves on the scientific advisory board for the Multiple Sclerosis Society of GB & NI, International Society for Neuroimmunology, Genzyme Corporation steering committee, UK Advisory Board, Merck Serono; is a consultant and receives speakers' honoraria from Nil, Merck Serono, Genzyme Corporation, Bayer Schering Pharma; and has a patent for IL-21 as a marker of autoimmunity after alemtuzumab treatment.