Podcast appearances and mentions of jan oldenburg

Family and friends dispersed Mighty Casey (Mary) Quinlan's ashes in the Gulfstream, reflecting on her life and sharing outrageous and mundane pics and stories. Summary On May 24, 2024, Mighty Casey Quinlan's ashes were spread in the Gulfstream of the Atlantic Ocean near Stuart, Florida. This episode captures the layers of that experience, featuring an introduction conversation between Jan Oldenburg and Health Hats, recorded on June 27. The episode includes self-introductions of the dispersal party, a historical photo tour of Casey's life, and a reflection from Hank Burchard. The package of audiovisual pieces including a 17-minute video with introductions and a three-minute photo tour by Casey's sister, CeCe can be found in the show notes. Coming soon, Casey's website, mightycasey.com, will include all her podcasts and the contents of six VHS and one Beta tape recorded over the years. Check our progress. These show notes DO NOT include images.  Images are key to this episode. Click here to view the printable newsletter with images.  Contents Table of Contents Toggle CreditsEpisodeProemPodcast introThere's Something Happening HereHow I Met CaseyCall to actionPhoto Tour with Historian, CeCe CaseyJan and Danny sign offReflection from HankPodcast OutroCreative Commons Licensing Please comment and ask questions: at the comment section at the bottom of the show notes on LinkedIn  via email YouTube channel  DM on Instagram, Twitter, TikTok to @healthhats Production Team Kayla Nelson: Web and Social Media Coach, Dissemination, Help Desk  Leon van Leeuwen: article-grade transcript editing  Oscar van Leeuwen: video editing Julia Higgins: Digit marketing therapy Steve Heatherington: Help Desk and podcast production counseling Joey van Leeuwen, Drummer, Composer, and Arranger, provided the music for the intro, outro, proem, and reflection, including Moe's Blues for Proem and Reflection and Bill Evan's Time Remembered for on-mic clips. Podcast episodes on YouTube from Podcast. Inspired by and Grateful to  Jan Oldenburg, CeCe Casey, Michael Casey, Myrna Isaacs, Piper Dankworth, Laurie Rodgers Stukel, Hank Burchard, Dave DeBronkhart, Amy Price Links and references Casey's Website Health Hats Podcasts with and about Casey  Credits Music behind photos scraped from YoYo Ma on Fresh Air Images of Casey throught taken by family and friends over the years Episode This transcript DOES NOT include images.  Images are key to this episode. Click here to view the printable newsletter with images. Proem Health Hats: On May 24th, 2024, we spread Casey's ashes in the Gulfstream of the Atlantic Ocean near Stuart, Florida. This episode layers several of the many pieces of that experience. I stopped here because I'd had enough. Time to publish! You'll find an intro conversation between Jan Oldenburg and me recorded on June 27th, followed by self-introductions of the dispersal party, recorded by our guide, Karen Hallett. Next, we'll take a historical photo tour of Casey's life, piloted by Casey's sister, CeCe. I only included about fifteen of the almost one hundred photos, as the resulting three-minute clip took almost twenty hours to produce. We'll end with me reading Hank Burchard's post-event reflection, and then Jan and I will wrap it up. The written and audio include everything except the videos, of course. I will create a 17-minute video with the introductions and a three-minute one with the photo tour. I'm resurrecting Casey's website to include all her podcasts and the contents of six VHS and one Beta tape Casey recorded over the years. The URL will be Casey's https://mightycasey.com. Try it to see if we've got it ready. Podcast intro Welcome to Health Hats, the Podcast. I'm Danny van Leeuwen, a two-legged cisgender old white man of privilege who knows a little bit about a lot of healthcare and a lot about very little.

Dr. Joel Hudgins muses on up and downstream changes to Peds ED for emerging adults with mental illness. Higher numbers & acuity, too few beds, services, & staff About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare.  Let's make some sense of all this. We respect Listeners, Watchers, and Readers. Show Notes at the end. Watch on YouTube Read The same content as the podcast, but not a verbatim transcript. A newsletter-like version with images. Could be a book chapter. download the printable transcript here Contents Proem.. 1 Update on Mighty Mouth Casey Quinlan. 2 Podcast intro. 2 Health is fragile. 2 Crossing the threshold into the ED. 2 How can we help up front?. 3 Upstream and downstream issues 4 Can we really help? It takes a toll. 4 A word from our sponsor, Abridge. 5 System interventions/solutions. 5 Hopeful, hopeless 6 Real people all around. 6 Profound knowledge. 7 Academic medical center versus critical access hospital 7 Reflection. 8 Next: Episode #8: COAST. 8 Podcast Outro. 9 Proem In this series we've met Emeka and Annie, two emerging adults with mental illness and Emeka's mom, Erika. We learned about their ‘something's wrong' experience, finding treatment, family dynamics, and recovery. We met Matt, a high school teacher leading a student-run welcoming Ambassador program, and Dr. Bonnie, a primary care doc, managing the care of emerging adults with developing and full-blown illness with limited resources. You can see that I'm starting in the center with lived experience and spiraling out. Photo by razvan-mirel-xhYhjMIfsq8-unsplash Welcome to today's episode, #7 in the series, of the lived experience of another professional, Dr Joel Hudgins, pediatric emergency physician at Boston Children's Hospital.  Full disclosure, I worked from 2002 to 2008 at Boston Children's leading their patient family experience initiative and I worked as a nurse/paramedic at two rural hospitals in West Virginia in the late eighties, early nineties. Despite my experience in pediatrics and emergency services, I feel out-of-touch with the dynamics of treating an increasing proportion of youth with mental illness while also faced with exploding infectious disease incidence, COVID, RSV, and flu. Emergency care and pediatrics are near and dear to my heart. Let's see what we can learn with Dr. Joel Hudgins. Update on Mighty Mouth Casey Quinlan Before we begin, I published my last episode on April 1, 2023, the mashup of my chats with Casey Quinlan. Many subscribers reached out to me. Is Casey alive or has she passed? I purposefully left it ambiguous because I didn't know when people would be reading, listening, or watching. Besides, Casey told me several times over the years when I called her about various deaths in my family, why do funerals and memorial services need to come after death? Anyway, as of today, April 12, 2023, Casey lives in a hospice, with several visitors a day, alert for short periods of time, still snarky. Go to CaringBridge.com, for up-to-date information from Jan Oldenburg. From Health Hats, the Podcast https://health-hats.com/pod193/ Podcast intro Welcome to Health Hats, the Podcast. I'm Danny van Leeuwen, a two-legged cisgender old white man of privilege who knows a little bit about a lot of healthcare and a lot about very little. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all of this. Health is fragile

Mighty Casey Quinlan, Healthcare Is Hilarious continues to cope with her breast cancer #MetsParty. We co-produce when her audience clammers for news and wit. SEE LINK TO YOUTUBE VERSION BELOW Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player Please support my blog and podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem Podcast intro 00:29 What's new for Health Hats? 01:09 Casey's health-kidney function 03:26 Casey's health - chemo and radiation 06:00 Casey's spiritual health 09:30 A word from our sponsor, Abridge 10:59 Recognizing success in advocacy 11:40 System change 13:24 Quantitative versus qualitative 17:13 Advice, oh wise woman? 17:59 Reflection 21:28 Podcast Outro 23:09 Please comment and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email YouTube channel  DM on Instagram or Twitter to @healthhats Credits Intro and outro music by permission from Joey van Leeuwen, Drummer, Composer, Arranger Web and Social Media Coach Kayla Nelson @lifeoflesion The views and opinions presented in this podcast and publication are solely the responsibility of the author, Danny van Leeuwen, and do not necessarily represent the views of the Patient-Centered Outcomes Research Institute®  (PCORI®), its Board of Governors or Methodology Committee. Sponsored by Abridge Inspired by and grateful to Geri Lynn Baumblatt, Jan Oldenburg, Janice Tufte, Regina Holliday Links Healthcare Is Hilarious Related podcasts https://health-hats.com/pod139/ https://health-hats.com/pod127/ https://health-hats.com/pod173/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare.  Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge.  Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements.  Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem My dear friend, Mighty Casey Quinlan, of Healthcare Is Hilarious fame, continues to cope with her breast cancer #MetsParty. We co-produce an episode when Casey doesn't feel well, and her audience clammers for news and wit. I recorded conversations that we both could use for our podcasts twice before. Let's jump right into our chat. Podcast intro Welcome to health hats, the podcast I'm Danny van Leeuwen a two-legged cisgender old white man of privilege who knows a little bit about a lot of healthcare and a lot of our very little. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all of this. What's new for Health Hats? Mighty Casey: Hello, dear. How are you? What's new? Health Hats: What's new?

Chat with Isabelle Barbour, Truth teller Consulting, about partnerships, community advocacy, privilege, disparities, trust, and being your best self. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player Please support my blog and podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem.. 2 Introducing Isabelle Barbour 01:11. 2 Intro 02:23. 2 Health Improvement Collaborative of Southeast Connecticut 02:59. 2 Writer's Block & SCORE 04:59. 3 Collaborations 06:32. 3 Partnership grants - Mini-grant Funding 08:14. 4 Partners, grantees, power - Be the change 11:25. 4 Needing help, asking for help, accepting help 14:11. 5 Vulnerability, humility 17:50. 6 Earn respect. Practice being our best selves 22:20. 6 Disparities in research 26:14. 7 Leveraging privilege 27:25. 7 I already drank the Kool-Aid. Now what? 31:23. 8 Partnerships between communities and researchers 33:48. 8 Move at the Speed of Trust 36:59. 9 Maternal health 39:32. 10 Vulnerability and partnerships 40:52. 10 Truth Teller Consulting 42:17. 10 Take a step back to reflect 43:02. 10 Keeping my ear to the ground 44:32. 11 Managing with my brain as it is 46:30. 11 Nourishing the brain 48:50. 12 Try something else 50:04. 12 Reflection 53:12. 13 Outro  13 Please comment and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email DM on Instagram or Twitter to @healthhats Credits Intro and outro music by permission from Joey van Leeuwen, Drummer, Composer, Arranger Web and Social Media Coach Kayla Nelson @lifeoflesion The views and opinions presented in this podcast and publication are solely the responsibility of the author, Danny van Leeuwen, and do not necessarily represent the views of the Patient-Centered Outcomes Research Institute®  (PCORI®), its Board of Governors or Methodology Committee. Sponsored by Abridge Inspired by and grateful to Ellen Schultz, Neely Williams, Fatima Muhammed Ighile, Jan Oldenburg, Jodyn Platt, Dr. Lisa Masinter, Dr. Michele Whitt, Kristin Carman Links Truth Teller Consulting Health Improvement Collaborative of Southeastern Connecticut. Robert Wood Johnson Foundation Writer's Block SCORE PCORI solutions to create, catalog, and disseminate public engagement tools   Related podcasts https://health-hats.com/pod133/ https://health-hats.com/minister-to-community-spirit/ https://health-hats.com/trust-willing-to-be-vulnerable-worth-the-investment/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare.  Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge.  Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements.  Please let me know. danny@health-hats.com.

A new research paper was published in Oncotarget on August 4, 2022, entitled, “Kinase activity profiling in renal cell carcinoma, benign renal tissue and in response to four different tyrosine kinase inhibitors.” Kinase activity is frequently altered in renal cell carcinoma (RCC), and tyrosine kinase inhibitors (TKIs) are part of the standard treatment strategy in patients with metastatic disease. However, there are still no established biomarkers to predict clinical benefits of a specific TKI. “Despite a number of new treatment options improving RCC patients' disease control rates and survival, the lack of useful biomarkers remains a major clinical concern.” In the current study, researchers Andliena Tahiri, Katarina Puco, Faris Naji, Vessela N. Kristensen, Glenny Cecilie Alfsen, Lorant Farkas, Frode S. Nilsen, Stig Müller, Jan Oldenburg, and Jürgen Geisler, from University of Oslo, Oslo University Hospital, Akershus University Hospital, and Pamgene International BV, performed protein tyrosine kinase (PTK) profiling using PamChip® technology. “The aim of this study was to identify differences in PTK activity between normal and malignant kidney tissue obtained from the same patient, and to investigate the inhibitory effects of TKIs frequently used in the clinics: sunitinib, pazopanib, cabozantinib and tivozanib.” The results showed that 36 kinase substrates differ (FDR < 0.05) between normal and cancer kidney tissue, where members of the Src family kinases and the phosphoinositide-3-kinase (PI3K) pathway exhibit high activity in renal cancer. Furthermore, ex vivo treatment of clear cell RCC with TKIs revealed that pathways such as Rap1, Ras and PI3K pathways were strongly inhibited, whereas the neurotrophin pathway had increased activity upon TKI addition. Their assay showed that tivozanib and cabozantinib exhibited greater inhibitory effects on PTK activity compared to sunitinib and pazopanib, implying they might be better suitable as TKIs for selected RCC patients. “The results of our study contribute to better understanding of the changes in kinase activity in RCC tumor cells involved in fundamental oncogenic cellular processes and the ex vivo effect of TKIs. We found tivozanib and cabozantinib to be more potent TKIs in RCC samples than sunitinib or pazopanib. The next step will be to correlate the efficacy and toxicity in individual patients with their respective kinase activity of normal and malignant kidney tissue.” DOI: https://doi.org/10.18632/oncotarget.28257 Correspondence to: Jürgen Geisler – Email: juergen.geisler@medisin.uio.no Keywords: kidney cancer, kinase activity, tyrosine kinase inhibitors, renal cell carcinoma, tyrosine kinase About Oncotarget: Oncotarget (a primarily oncology-focused, peer-reviewed, open access journal) aims to maximize research impact through insightful peer-review; eliminate borders between specialties by linking different fields of oncology, cancer research and biomedical sciences; and foster application of basic and clinical science. To learn more about Oncotarget, visit Oncotarget.com and connect with us on social media: Twitter – https://twitter.com/Oncotarget Facebook – https://www.facebook.com/Oncotarget YouTube – www.youtube.com/c/OncotargetYouTube Instagram – https://www.instagram.com/oncotargetjrnl/ LinkedIn – https://www.linkedin.com/company/oncotarget/ Pinterest – https://www.pinterest.com/oncotarget/ LabTube – https://www.labtube.tv/channel/MTY5OA SoundCloud – https://soundcloud.com/oncotarget For media inquiries, please contact: media@impactjournals.com.

BUILD provides opportunities for young adults to find their footing and self-confidence through entrepreneurship. We need them. Betsy Neptune tells us more. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player Please support my blog and podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem.. 1 Introducing Betsy Neptune 01:05. 1 BUILD, Becoming CEO of your life 04:51. 2 Pitching products, services, yourself – Life skills 06:38. 3 How do I know this could help me? 08:10. 3 Mentorship 08:52. 4 Community integration 11:05. 4 Building resilience, managing manageable stress 11:51. 4 Cushion to fail 13:43. 5 $50 seed 15:20. 5 Raw talent, practice, put in the time 15:57. 5 Universal skills – just do it, follow through 18:07. 6 The health connection 20:47. 7 Reflection 23:04. 7 Pablo Pueblo with Lechuga Fresca Latin Band 32:22. 8 Please comment and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Drummer, Composer, Arranger Web and Social Media Coach Kayla Nelson @lifeoflesion The views and opinions presented in this podcast and publication are solely the responsibility of the author, Danny van Leeuwen, and do not necessarily represent the views of the Patient-Centered Outcomes Research Institute®  (PCORI®), its Board of Governors or Methodology Committee. Sponsored by Abridge Inspired by and grateful to Jimmy Clare, Sara Lorraine Snyder, Jan Oldenburg, Lauren Reimer-Etheridge, Morgan Gleason Links BUILD.org national BUILD Boston Lechuga Fresca - Cool as a Cucumber Related podcasts https://health-hats.com/ya_transition/ https://health-hats.com/pod153/ https://health-hats.com/pod117/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare.  Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge.  Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements.  Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem I feel joy when my many worlds overlap, collide, and mush together. Upon reflection, of course, how could they not? Health touches everything, especially in its absence. Music feeds and soothes the soul (unless it grates). Health starts before birth and continues through actualization.  When I met Betsy Neptune as a conga player and vocalist in the Latin band Lechuga Fresca, I didn't know she was Executive Director of Boston BUILD, an entrepreneurship program for underserved high school students that teaches them how to build their own business while becoming the CEO of their own lives. Youth,

Patients, care partners & clinicians can reduce record errors with collaborative notes. Dr. Peter Elias shares his note-writing with collaborative partners. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player Please support my blog and podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem.. 1 Introducing Peter Elias 01:41. 2 Medical documentation over the years 02:42. 2 Records go from paper to electronic 05:55. 3 Copies of doctors' notes to patients, sometimes 7:16. 3 Always 10:28. 4 Patients feel reassured 11:21. 4 Care planning and collaborative notes 12:20. 4 Challenging conversations 12:46. 4 Families, records, getting it right 14:00. 5 Using a scribe to assist with documentation 15:16. 5 Misdiagnosis and long-standing error 16:24. 5 Preserving data, accurate data, workarounds 18:02. 6 Insurance companies 20:24. 6 Open Notes, relationships with clinicians 21:27. 6 Not at your best at the doctor's office 22:13. 6 Getting the most out of it 24:10. 7 Coaching other docs 25:04. 7 Emerging issues 26:40. 8 For other clinicians 27:36. 8 Reflection 29:12. 9 Please comment and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Drummer, Composer, Arranger Web and Social Media Coach Kayla Nelson @lifeoflesion The views and opinions presented in this podcast and publication are solely the responsibility of the author, Danny van Leeuwen, and do not necessarily represent the views of the Patient-Centered Outcomes Research Institute®  (PCORI®), its Board of Governors or Methodology Committee. Sponsored by Abridge Inspired by and grateful to Liz Salmi, Tom Delbanco, Danny Sands, Janice Tufte, Alexis Snyder, Jan Oldenburg, Virginia Lorenzi Links Society for Participatory Medicine How accurate is the medical record? A comparison of the physician's note with a concealed audio recording in unannounced standardized patient encounters in the Journal of Informatics in Health and Biomedicine How to Correct Errors in Your Medical Records Correcting Errors In the Electronic Medical Record Impact of Electronic Health Record Systems on Information Integrity: Quality and Safety Implications Beat cancer? Your Medicare Advantage plan might still be billing for it. Related podcasts https://health-hats.com/pod168/ https://health-hats.com/opennotes-a-gold-mine-of-community-organizing/ https://health-hats.com/misdiagnosis-how-can-patients-help-doctors/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare.  Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge.  Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website).

Engaging patients differs depending on the role. Those on national Boards lead, strategize, advocate, communicate. Adam Thompson is on the Board of NQF. Listen in. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player Please support my blog and podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem.. 1 Introducing Adam Thompson 02:38. 1 Patient-caregiver advocates on national Boards of Directors 04:21. 2 Activist, Advocate, Conduit, Leader 06:15. 3 The Ryan White HIV/AIDS Program 09:42. 4 Pulling the curtain back. Feeling our oats. 13:52. 4 The right place to make a difference and re-charge 18:26. 5 Learn, coach, mentor 20:43. 6 Listen, reveal, shout 25:50. 7 Levers of power. Drunk the Kool-Aid. Now what? 30:56. 8 Transparency. The sausage gets made. 34:17. 9 More on conduits 39:39. 10 Engage, dissemination, act 41:02. 10 Is seeking public comment enough? 42:54. 11 Reflection 45:00  11 Please comment and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Drummer, Composer, Arranger Web and Social Media Coach Kayla Nelson @lifeoflesion The views and opinions presented in this podcast and publication are solely the responsibility of the author, Danny van Leeuwen, and do not necessarily represent the views of the Patient-Centered Outcomes Research Institute®  (PCORI®), its Board of Governors or Methodology Committee. Sponsored by Abridge Inspired by and grateful to Nikki Montgomery, Matthew Pickering, Jan Oldenburg, Danny Sands, Matt Hudson,  Dana Gelb Safron, Nakela Cook, Christine Goertz, Kristin Carman, Luc Pelletier, Jan Oldenburg, Sharon Levine, Kara Ayers Links Adam Thompson, LinkedIn National Quality Forum (NQF) PCORI (Patient-Centered Outcomes Research Institute) Dr. David Nash Ryan White program Dolores Dockrey Dr. W Edwards Deming called it profound knowledge. Related podcasts https://health-hats.com/pod110/ https://health-hats.com/pod145/ https://health-hats.com/pod153/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare.  Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge.  Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements.  Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem As a nurse, I studied individual health. Then I became a student of organizational health. That led me to management and leadership - all with the mind to get stuff done. Done for people, with people, by people -patients, caregivers, and direct care clinicians. My role changed at each step.

Coaching, critical to my success in life, art, politics, advocacy. Still need to do my own work & make choices. Listen to a session with one of my coaches, Jan Oldenburg. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem.. 1 The start of a business relationship 03:19. 2 Managing the swirl of me 05:50. 2 Coaching as a parent of a teen 07:21. 3 Advice, reflection, self-reflection, shades of grey 09:56. 3 First, build trust 11:02. 3 New position, new relationships, new levers 12:51. 4 Measurable outcomes of a strategic plan 16:24. 4 Changing roles at PCORI 17:02. 5 Vanilla management training. No nuts 20:08. 5 Clarifying personal mission, priorities, goals 24:26. 6 Staying in touch with, leveraging, advancing my constituency 26:27. 6 Capable of a delicate balance? 29:22. 7 Rare Disease as an inequity 30:15. 7 Keeping a pulse on Board effectiveness 32:23. 7 Leadership role on the Board 34:00. 8 The rest of my life 39:11. 9 Reflection 45:42. 10 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Web/social media coach, Kayla Nelson Rumours of Light image used by permission from Sue Heatherington @theWaterside Quiet Disruptors Inspired by and grateful to: Christine Goertz, Sharon Levine, Nakela Cook, Mike Herndon, Tanisha Carino, Kara Ayers, Connie Hwang, Luc Pelletier, Caryl Carpenter, Dorothy Cucinelli, Peter Tetrault, Tim Sullivan, Cynthia Meyer Sponsored by Abridge Links Related podcasts and blogs https://health-hats.com/pod141/ https://health-hats.com/chiropractic-operating-at-peak-performance/ https://health-hats.com/retirement-micro-stepping-with-mini-goals/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem Want to be a fly on the wall of a year-end session with my professional coach, Jan Oldenburg? You can hear the good, the bad, and the ugly of my process to hone and strategize my professional and personal work. Why would I share a coaching session? Is this TMI (Too much information) too private? Does it make me vulnerable? In last week's podcast, Matthew Hudson emphasized that you reveal something about yourself with the questions you ask, the problems you try to solve. Frankly, I am a bit anxious about sharing this, but you already know that I have little guile. I wear my life on my sleeve.

Patients are humans. The digital health landscape is constantly evolving, and there is a lot of opportunity for the US healthcare system to better utilize tools and data to improve the patient experience by viewing them as human beings with individual needs and values. In today's episode, we're looking at the intersection of healthcare and experience with Jan Oldenburg of Participatory Health Consulting. Tune in to hear how we can start doing better by patients.   In This Episode:   [01:30] Introducing Jan and her role at Participatory Health Consulting. [09:34] The complexities of the healthcare system and social environment in the US. [14:58] The impact of Covid-19 and how quickly the healthcare system can change. [24:45] The untapped potential of using data for individualized care and tools that are helping get to specific why's effectively at scale. [30:52] Why both the physical and the digital environments have to cohere. [35:41] Aransas and Dave's main takeaways for experience strategists.   Key Takeaways:   Participatory health is health care that takes advantage of the individual and respects that person and their decision-making and engagement in the process. Social determinants of health, such as social and physical environment, community, and broadband capabilities, all significantly impact your ability to be healthy.  Your zip code is the thing that can most tell how healthy you're likely to be because it reflects all of the societal components that affect your health. Generalized education doesn't work. It's crucial to individualize the patient experience and deeply understand their journeys, needs, values, and what motivates them to drive cost down for the whole system and drive efficacy up.   Bio:    Jan Oldenburg, FHIMSS, is the principal in Participatory Health Consulting. She advises and mentors healthcare organizations about the evolving digital health landscape.    Ms. Oldenburg has focused on digital transformation in healthcare for 20 years. Her experience includes leadership roles in several advisory firms, including EY. She has worked for and advised organizations in all areas of healthcare: payers, providers, medical device manufacturers and software vendors. She served as the Vice President of Patient and Physician Engagement in Aetna's ACO organization and held senior leadership roles in Kaiser Permanente's Digital Services Group and at HealthPartners. Selected consulting clients include: UnitedHealth Group, Philips Healthcare, CareCredit, MedRespond, Synergiq, Healthfully, Spectrum Enterprise, Baxter Regional Health System and others.    Ms. Oldenburg is the principal editor of both Participatory Healthcare: A Person-Centered Approach to Transforming Healthcare published 2016 and Engage! Transforming Healthcare Through Digital Patient Engagement, published in 2013. Ms. Oldenburg also authored chapters in the Third and Fourth Editions of Medical Informatics and The Journey Never Ends. She's a board member of the Society for Participatory Medicine, co-chair of the HL7 Patient Contributed Data workgroup, and the former co-chair of the HIMSS Connected Health Committee. Ms. Oldenburg is also a member of the Patient Advocacy & Ethics Group for the Datavant COVID-19 Research Database. She tweets @janoldenburg.     Links Mentioned:   http://janoldenburg.com   Twitter @JanOldenburg

Innovation is not like switching on a lightbulb for the world. Rather it's local iterative, persistent steps. Thoughts from the Patient Experience Symposium. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem.. 1 Oy, the noise in my head 02:09. 1 Let's start positive. 03:14. 1 Research and innovation 06:18. 2 Prioritizing innovation – limits 08:32. 3 Innovations in engagement – innovators need innovative settings 09:04. 3 Reflection 09:50  3 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Web/social media coach, Kayla Nelson Photo by Ross Findon on Unsplash Inspired by and grateful to Jan Oldenburg, Kristin Carman, Joanna Siegel, Juhan Sonin, Laura Marcial, James Harrison Sponsored by Abridge Support Health Hats, the Podcast financially Links Patient Experience Symposium COVID-19 Through the Eyes of an American Refugee: A Story of Engagement Co-Designing Telehealth with Patients the Cambridge Health Alliance the Society of Participatory Medicine Hospitals Collaborate to Ensure COVID Care for Every Coloradan Kaiser Permanente funds community health innovations Patient-Centered Outcomes Research Institute, Request for Information: Science of Engagement Funding Initiative Harlan Krumholz Keynote Patient-Powered Research Related podcasts and blogs https://health-hats.com/community-rocks/ https://health-hats.com/cinderblocks4-medical-advocacy-at-its-best/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem As I left the Patient Experience Symposium in Boston, (Yes, an in-person conference. How weird!) I felt schizophrenic. On the one hand, has the healthcare industry progressed at all hardwiring the improvement of patient experience? On the other, OMG, so much innovation! I listened to dedicated, diehard patient experience professionals teeming with frustration at the setbacks occurring during COVID-19 days. Families excluded from the bedside; people dying alone; active, engaged, mature patient-family infrastructure canceled, dying on the vine. I also sat rapt, hearing diverse community representatives inspired by collaborative local COVID-19 problem-solving. In this episode, I will muse about healthcare innvation, while trying to stay positive. Thanks to the Society of Participatory Medicine for subsidizing my attendanc...

Take a brief break with several six-word caregiver poems, like 'Pillow, Pills, Poop, Piss, and Pain' plus a poem about me from The Good Listening Project. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem.. 1 Six-word caregiving poems 02:37. 1 A Guide to Pathological Optimism 04:38. 2 Reflection 05:34  2 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Web/social media coach, Kayla Nelson Photo by Jon Tyson on Unsplash Inspired by and grateful to Jan Oldenburg, Cynthia Meyer, Steve Heatherington, Jane Beddall, Heidi Frei, Tania Marien, Suzanne Jones, Bob Buckley, Gabrielle Pitman, Sue Fantl Spivack Sponsored by Abridge Support Health Hats, the Podcast financially Links Good Listening Project Related podcasts and blogs https://health-hats.com/retirement-micro-stepping-with-mini-goals/ https://health-hats.com/share-the-stories-help-the-helpers/ https://health-hats.com/the-silence-between-the-notes/   About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem Hello, fine listeners and readers. This is my 143rd episode and my 510th post. I began weekly blogging on July 24th, 2012, and weekly podcasting on November 28th, 2018. I've missed two posts in nine years. A short episode on mic- just me talking for 10 to 30 minutes- takes five to twelve hours to produce. This episode took six hours. A full 40-to-60-minute interview takes 12 to 40 hours to produce. Yikes. While I enjoy almost every minute of doing it, I feel the pressure of maintaining this production level and quality. A few months ago, I shifted to alternate weeks of interviews and on mic episodes. That reduced the effort. Now I'm going to give myself a break- not stop- because I love it. But not pressure myself to produce every week. So, I will miss some. I'm letting you know. Thanks for your continuing support and support from our sponsor, Abridge, going into our third year together. And as always, thanks to Kayla Nelson and Joey van Leeuwen. You helped me make this great. Thank you. Six-word caregiving poems So, let's start with six-word caregiving poems. For this week, from the past, and it's from an episode on January 13th, 2019. Blood, sweat, tears. Shared by two. Helping one end and another begin. Disaster that ultimately gives back.

Are you a patient-caregiver activist winding down? Let's chat and hand off to younger people feeling their way & support them as they perceive their needs. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Winding down. 1 The Health Hats of Tomorrow 02:31. 1 Legacy 03:23. 1 Succession planning 04:42. 2 The movement cycle 06:46. 2 Collaborate? 07:54. 2 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Photo by Brett Jordan on Unsplash Web/social media coach, Kayla Nelson Mambo Inn composed by Mario Bauza and played by Lechuga Fresca Latin Band Inspired by and grateful to Bill Adams, Freddie White Johnson, Beverly Rogers, Jan Oldenburg, Neely Williams, Thomas Scheid, Pancho Chang, Matt Cheung, Janice McCallum, Casey Quinlan, Dave DeBronkart, Regina Greer-Smith, Sharon Levine, Philip Posner, Janice Tufte, Jane Sarasohn-Kahn, Susan Woods, Michael Millenson, Peter Elias, Cynthia Meyer Sponsored by Abridge Support Health Hats, the Podcast financially Links Related podcasts and blogs https://health-hats.com/retirement-micro-stepping-with-mini-goals/ https://health-hats.com/share-the-stories-help-the-helpers/ https://health-hats.com/caring-for-parents-its-their-life-open-the-door/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Winding down As a direct care nurse, I sought to put myself out of business one patient at a time. As a boss, I had succession planning as top of mind, ensuring the team continued to operate without me if I got fired, laid off, or run over by a bus. Now I'm winding down. I'm past my prime.  I'm seasoned. I'll be 70 this year. What legacy do I leave? Who's coming up in the patient-caregiver activist world. How can I support the next generations of activists? Legacy includes spirit, inspiration, a written and oral body of work, plus policy and practice change hardwired into teams, organizations, and communities. Succession planning includes mentoring, coaching, mastermind groups, and opening more paid seats at the table. Goodness, stated like that, it feels like more work rather than winding down. The Latin band Lechuga Fresca plays Mambo Inn, the music behind the podcast. In addition, thanks to Joey van Leeuwen who creates the amazing music for my podcast, heard here in the intro and outro and our sponsor's message,

Patient caregiver activist, Nikki Montgomery, brings voices to healthcare Board of Directors for safety, access, and equity. Orientation, dashboards, mentorship Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Sponsored by Abridge Web/social media coach, Kayla Nelson Thanks to these fine people who inspired me for this episode: Hala Durrah, Dr. Knitasha Washington, Desiree Collins Bradley, Fateemah Idia, Diane Gould, Dick Argys, Jan Oldenburg, Kara Ayers, Lynda Mitchell, Ellen Schultz, Libby Hoy, Michelle Horvath Links Nikki Montgomery Executive Director, Madvocator Educational & Healthcare Advocacy Training Author, Super Safe Kids patient safety book series Patient advocate, hospital board member, and the past president of the Patient and Family Partnership Council at University Hospitals’ Rainbow Babies & Children’s Hospital in Cleveland, Ohio. Project coordinator for The Beryl Institute’s Patient Experience Policy Forum (PXPF) and serves on the Global Patient and Family Advisory Board American Institutes for Research and ATW Health Solutions Recommendation Fateemah Idia's, Thriving with Sickle Cell Related podcasts and blogs https://www.health-hats.com/zen_relationshipcentered_measure/   https://www.health-hats.com/leadership-the-gift-that-keeps-on-giving/ https://www.health-hats.com/teachable-spirit-patient-family-advisors/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://www.health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem As you know, I’m on the Board of Governors for PCORI (Patient-Centered Outcomes Research Institute). The view, the possibilities, and the levers of power are different in a Board seat than in an advisory, leader, or staff seat. I’m gaining my sea legs, building trust, relationships, and learning about strategy, dashboards, and figuring out how to best support staff and leadership from my perch. Introducing Nikki Montgomery I met Nikki Montgomery a couple of months ago when Dr. Knitasha Washington and Desiree Collins Bradley, and Hala Durrah interviewed us together about the practice of equitable, patient-centered measurement.  A collaborative partnership had been formed between the American Institutes for Research and ATW Health Solutions to exam...

Patient caregiver activist, Nikki Montgomery, brings voices to healthcare Board of Directors for safety, access, and equity. Orientation, dashboards, mentorship Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem 00:54. 1 Introducing Nikki Montgomery 01:33. 1 Patient-caregiver member on Board 04:43. 2 Story collector 08:29. 3 Keeping fingers on the pulse of an organization 11:21. 4 Building coalitions on a board 14:54. 4 Begin the board relationship 16:42. 5 Recognizing success 20:07. 6 Continual safety and equity 24:18. 7 Sustaining the gains and then some 25:32. 7 Leveraging privilege 26:57. 8 Reflection 30:28  8 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Sponsored by Abridge Web/social media coach, Kayla Nelson Thanks to these fine people who inspired me for this episode: Hala Durrah, Dr. Knitasha Washington, Desiree Collins Bradley, Fateemah Idia, Diane Gould, Dick Argys, Jan Oldenburg, Kara Ayers, Lynda Mitchell, Ellen Schultz, Libby Hoy, Michelle Horvath Links Nikki Montgomery Executive Director, Madvocator Educational & Healthcare Advocacy Training Author, Super Safe Kids patient safety book series Patient advocate, hospital board member, and the past president of the Patient and Family Partnership Council at University Hospitals' Rainbow Babies & Children's Hospital in Cleveland, Ohio. Project coordinator for The Beryl Institute's Patient Experience Policy Forum (PXPF) and serves on the Global Patient and Family Advisory Board American Institutes for Research and ATW Health Solutions Recommendation Fateemah Idia's, Thriving with Sickle Cell Related podcasts and blogs https://health-hats.com/zen_relationshipcentered_measure/   https://health-hats.com/leadership-the-gift-that-keeps-on-giving/ https://health-hats.com/teachable-spirit-patient-family-advisors/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem As you know, I'm on the Board of Governors for PCORI (Patient-Centered Outcomes Research Institute). The view, the possibilities, and the levers of power are different in a Board seat than in an advisory, leader, or staff seat. I'm gaining my sea legs, building trust, relationships, and learning about strategy,

I fear our limited capacity to care for each other during COVID-19. It's not beds or equipment, rather a limit of caring people with expertise. All sorts of expertise. It's a finite pool that we need to invest in and support for the long term – two weeks, a month, a year. I know many burning out expert healthcare workers ready to throw in the towel. Learn about Project COPE Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem 00:52. 1 Introducing Mark Heywood Johnson and Smitty Heavner 02:11. 2 Chronicling with Project COPE 04:59. 2 Mixed methods research: Interviews and surveys, numbers and experience 09:19. 3 Vlogging: Video blogs 11:36. 5 Including who? Self-identified healthcare worker 13:53. 5 Healthcare workers providing family caregiving 14:49. 5 Answering what questions? 18:00. 6 Scared and exhausted 20:12. 7 Quadruple Aim: Healthcare workers matter 21:08. 7 Including healthcare workers in design 22:20. 7 Including patients in design 23:51. 8 If you could do it over? 24:35. 8 Follow, join, learn 25:35. 8 Reflection 27:28. 9 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Photo by National Cancer Institute on Unsplash Photo by jose aljovin on Unsplash Sponsored by Abridge Thanks to these fine people who inspired me for this episode: Mary Ellen Cortizas, Geri Lynn Baumblatt, Mary Anne Sterling, Jan Oldenburg, Jonathan Wald, Sherry Reynolds, Mary Griskewicz, Jane Sarasohn-Kahn, Kistein Monkhouse Links SC Public Radio: It's Not About Superheroes: The Very Human Toll COVID Takes on Frontline Healthcare Workers SC Public Radio: An Upstate Collaborative Chronicles Moral Distress in 'Non-Essential' Healthcare Workers Nurse Keith's COVID-19 Update #15 | The Nurse Keith Show LinkedIn: Smitty Heavner-Sullivan LinkedIn: Mark Heyward Johnson Link to Study Site: Project COPE http://projectcope.info https://www.facebook.com/InfoProjectCOPE/ https://www.instagram.com/cope_project/ https://twitter.com/cope_project   Mixed methods in detail Mixed methods simply Quadruple aim. Providers matter. Related podcasts and blogs https://health-hats.com/share-the-stories-help-the-helpers/ https://health-hats.com/help_the_helpers_in_crisis/ https://health-hats.com/help-the-helper/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com.

I fear our limited capacity to care for each other during COVID-19. It’s not beds or equipment, rather a limit of caring people with expertise. All sorts of expertise. It’s a finite pool that we need to invest in and support for the long term – two weeks, a month, a year. I know many burning out expert healthcare workers ready to throw in the towel. Learn about Project COPE Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem 00:52. 1 Introducing Mark Heywood Johnson and Smitty Heavner 02:11. 2 Chronicling with Project COPE 04:59. 2 Mixed methods research: Interviews and surveys, numbers and experience 09:19. 3 Vlogging: Video blogs 11:36. 5 Including who? Self-identified healthcare worker 13:53. 5 Healthcare workers providing family caregiving 14:49. 5 Answering what questions? 18:00. 6 Scared and exhausted 20:12. 7 Quadruple Aim: Healthcare workers matter 21:08. 7 Including healthcare workers in design 22:20. 7 Including patients in design 23:51. 8 If you could do it over? 24:35. 8 Follow, join, learn 25:35. 8 Reflection 27:28. 9 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Photo by National Cancer Institute on Unsplash Photo by jose aljovin on Unsplash Sponsored by Abridge Thanks to these fine people who inspired me for this episode: Mary Ellen Cortizas, Geri Lynn Baumblatt, Mary Anne Sterling, Jan Oldenburg, Jonathan Wald, Sherry Reynolds, Mary Griskewicz, Jane Sarasohn-Kahn, Kistein Monkhouse Links SC Public Radio: It's Not About Superheroes: The Very Human Toll COVID Takes on Frontline Healthcare Workers SC Public Radio: An Upstate Collaborative Chronicles Moral Distress in 'Non-Essential' Healthcare Workers Nurse Keith’s COVID-19 Update #15 | The Nurse Keith Show LinkedIn: Smitty Heavner-Sullivan LinkedIn: Mark Heyward Johnson Link to Study Site: Project COPE http://projectcope.info https://www.facebook.com/InfoProjectCOPE/ https://www.instagram.com/cope_project/ https://twitter.com/cope_project   Mixed methods in detail Mixed methods simply Quadruple aim. Providers matter. Related podcasts and blogs https://www.health-hats.com/share-the-stories-help-the-helpers/ https://www.health-hats.com/help_the_helpers_in_crisis/ https://www.health-hats.com/help-the-helper/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://www.health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com.

In episode three of the PointHealthTech Podcast, Jan Oldenburg joins us to discuss the misalignment of goals between key healthcare players, why it's so difficult to make rational decisions in healthcare, and how we can understand the goals of the person, not just the goals of the system. When we asked Jan why it's difficult to find quality, affordable healthcare, she told us: “We keep pretending we've got an actual healthcare system rather than a collection of fragmentary parts.” Listen as Jan explains why and gives advice on how we can start fixing it.

Amazing includes failure, frequent failure. Hearing about a failure, we naturally ask, 'And then what happened? What did you learn? What eventually worked?' A brief episode with Health Hats. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Total Failure, Inc. 00:52. 1 The opposite of success? Not failure. 03:45. 1 Stay amazing 07:04. 2 Unintended consequences 07:43. 2 Bonnie Raitt: Unintended Consequences of Love 08:32. 3 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Bonnie Raitt -- Unintended Consequence of Love (Official Lyric Video) Sponsored by Abridge Photo by Alexey Fedenkov on Unsplash Photo by Steve Halama on Unsplash   Thanks to these fine people who inspired me for this episode: Oscar, CJ Rhoads, Sarah Krug, Jan Oldenburg, Robert Doherty, Janice Tufte Links Related podcasts and blogs https://health-hats.com/unintended_consequences/ https://health-hats.com/win-a-lottery-without-a-ticket/ https://health-hats.com/failure-is-under-rated/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Total Failure, Inc. My 9-year-old grandson reads to me, and I read to him on Zoom. He's reading me a book about Timmy Failure with a polar bear friend, Total. Their business is the Total Failure Detective Agency. What a hoot! I read Tom Sawyer and now Huckleberry Finn. I counseled my various teams over the years, if we don't fail several times a week, we're not pushing the envelope, not doing our jobs. Tightrope walkers, pharmacists, and airplane manufacturers might disagree. Still, for innovators, learners, and leaders, failure as a virtue is a hard sell, really for almost anyone. My teams, my colleagues in leadership, editorial review boards start by thinking I'm crazy.  Sometimes they eventually get it, sometimes not. Leadership usually wants to get As all the time. In one health system I worked for, I reported that we completed medication reconciliation in 40% of admissions. (Medication reconciliation is the process of creating the most accurate list possible of all medications a patient is taking — including drug name, dosage, frequency, and route — and comparing that list against the physician's orders to provide correct medications). OMG, that's awful! They said.

Amazing includes failure, frequent failure. Hearing about a failure, we naturally ask, 'And then what happened? What did you learn? What eventually worked?' A brief episode with Health Hats. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Total Failure, Inc. 00:52. 1 The opposite of success? Not failure. 03:45. 1 Stay amazing 07:04. 2 Unintended consequences 07:43. 2 Bonnie Raitt: Unintended Consequences of Love 08:32. 3 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Bonnie Raitt -- Unintended Consequence of Love (Official Lyric Video) Sponsored by Abridge Photo by Alexey Fedenkov on Unsplash Photo by Steve Halama on Unsplash   Thanks to these fine people who inspired me for this episode: Oscar, CJ Rhoads, Sarah Krug, Jan Oldenburg, Robert Doherty, Janice Tufte Links Related podcasts and blogs https://www.health-hats.com/unintended_consequences/ https://www.health-hats.com/win-a-lottery-without-a-ticket/ https://www.health-hats.com/failure-is-under-rated/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://www.health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Total Failure, Inc. My 9-year-old grandson reads to me, and I read to him on Zoom. He’s reading me a book about Timmy Failure with a polar bear friend, Total. Their business is the Total Failure Detective Agency. What a hoot! I read Tom Sawyer and now Huckleberry Finn. I counseled my various teams over the years, if we don’t fail several times a week, we’re not pushing the envelope, not doing our jobs. Tightrope walkers, pharmacists, and airplane manufacturers might disagree. Still, for innovators, learners, and leaders, failure as a virtue is a hard sell, really for almost anyone. My teams, my colleagues in leadership, editorial review boards start by thinking I’m crazy.  Sometimes they eventually get it, sometimes not. Leadership usually wants to get As all the time. In one health system I worked for, I reported that we completed medication reconciliation in 40% of admissions. (Medication reconciliation is the process of creating the most accurate list possible of all medications a patient is taking — including drug name, dosage, frequency, and route — and comparing that list against the physician’s orders to provide correct medications). OMG,

Helping people trying to live safely in COVID world? Listen to people, hear their questions. Can we find trusted evidence-based guidance? A daunting challenge! Collecting materials for a foundation. If not us, who? Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem 00:53. 1 We need help 05:26. 2 End users, audience, and the band 07:46. 2 Minimum viable audience 09:01. 3 Our approach 10:27. 3 Stories, personas 12:00. 3 Multi-generational, presumed uninfected, dense living, essential high-risk occupation 13:54. 4 Questions people ask 15:35. 4 Seek themes in answers 17:52. 4 Content process. Content stakeholders. The cycle. 20:50. 5 Metadata: Can people find it and trust it? 22:17. 5 So what? Now what? 26:32. 6 Trust in Journalism. Trust in anything. 29:53. 7 It's a river 32:22. 7 Systemic racism 34:54. 8 Asking questions of the research 27:30. 8 Wikipedia 40:25. 9 Drip, drip, drip, persist 41:35. 9 Other potential partners 42:44. 9 Interested in facts, in evidence? 47:07. 10 Nutrition labels and conflict of interest 48:01. 10 Reflection 51:00. 11 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Sponsored by Abridge Photo by Clarissa Watson on Unsplash Thanks to these fine people who inspired me for this episode: Laura Marcial, Natalks Slabyj, Cynthia LeRouge, June Levy, Kelly Reeves, Ellen Schultz, Sameemuddin Syed, Michael Waters, Michael Mittelman, Maria Michaels, Sharon Hibay, Victoria Lyon, Adrian Gropper, Amy Baxter, Amy Price Dafna Gold Melchior, Jan Oldenburg, Juhan Sonin, Libby Hoy, Pat Mastors, Shiv Roa, Gregory Markul, Brian Alper, Stephen Hoy​. Links Safe Living in an Epidemic Powerpoint Recommendations for Building and​ Maintaining Trust in Clinical Decision Support Knowledge Artifacts Seth Godin's Minimum Viable Audience EBSCO COVID-19 Resources NY Times Article on CDC and racial disparities data Joy Mayer, Trust in Journalism Deven McGraw DataVant Alan Alda Center for Communicating Science HON Code MyData Electronic Frontier Foundation Related podcasts and blogs https://health-hats.com/clinical-decision-support-technology-still-human/ https://health-hats.com/trust-willing-to-be-vulnerable-worth-the-investment/ https://health-hats.com/humanity-before-technology-clinical-decision-support/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website).

Helping people trying to live safely in COVID world? Listen to people, hear their questions. Can we find trusted evidence-based guidance? A daunting challenge! Collecting materials for a foundation. If not us, who? Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem 00:53. 1 We need help 05:26. 2 End users, audience, and the band 07:46. 2 Minimum viable audience 09:01. 3 Our approach 10:27. 3 Stories, personas 12:00. 3 Multi-generational, presumed uninfected, dense living, essential high-risk occupation 13:54. 4 Questions people ask 15:35. 4 Seek themes in answers 17:52. 4 Content process. Content stakeholders. The cycle. 20:50. 5 Metadata: Can people find it and trust it? 22:17. 5 So what? Now what? 26:32. 6 Trust in Journalism. Trust in anything. 29:53. 7 It’s a river 32:22. 7 Systemic racism 34:54. 8 Asking questions of the research 27:30. 8 Wikipedia 40:25. 9 Drip, drip, drip, persist 41:35. 9 Other potential partners 42:44. 9 Interested in facts, in evidence? 47:07. 10 Nutrition labels and conflict of interest 48:01. 10 Reflection 51:00. 11 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Sponsored by Abridge Photo by Clarissa Watson on Unsplash Thanks to these fine people who inspired me for this episode: Laura Marcial, Natalks Slabyj, Cynthia LeRouge, June Levy, Kelly Reeves, Ellen Schultz, Sameemuddin Syed, Michael Waters, Michael Mittelman, Maria Michaels, Sharon Hibay, Victoria Lyon, Adrian Gropper, Amy Baxter, Amy Price Dafna Gold Melchior, Jan Oldenburg, Juhan Sonin, Libby Hoy, Pat Mastors, Shiv Roa, Gregory Markul, Brian Alper, Stephen Hoy​. Links Safe Living in an Epidemic Powerpoint Recommendations for Building and​ Maintaining Trust in Clinical Decision Support Knowledge Artifacts Seth Godin's Minimum Viable Audience EBSCO COVID-19 Resources NY Times Article on CDC and racial disparities data Joy Mayer, Trust in Journalism Deven McGraw DataVant Alan Alda Center for Communicating Science HON Code MyData Electronic Frontier Foundation Related podcasts and blogs https://www.health-hats.com/clinical-decision-support-technology-still-human/ https://www.health-hats.com/trust-willing-to-be-vulnerable-worth-the-investment/ https://www.health-hats.com/humanity-before-technology-clinical-decision-support/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://www.health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website).

Jan Oldenburg from Norway discusses treatment choices for stage 1 testis cancer, the dilemma of high dose therapy for relapse and long term toxicity of chemotherapy.

Jan Oldenburg talks with me about participatory healthcare and the impact of COVID-19 on participatory medicine and digital health. Full show notes are here: https://michellemarketingstrategies.com/jan-oldenburg-on-participatory-healthcare-and-covid-19/ You can email me at jennifer@michellemarketingstrategies.com, tweet me @MMSJennifer or find me on Instagram @LeadingwithHealth. And if you haven't already, stop by my site and download your free copy of 100 Quotes from Women in Healthcare.

Han er en fremragende onkolog, professor med to doktorgrader og fire ganger nasjonal mester i roing. Så varslet han for noen år siden om en viktig svikt på jobben og møtte veggen. Jan Oldenburg jobber nå med urologisk kreft på Ahus og deler her sine opplevelser på en ærlig måte. Du får i tillegg nyttig informasjon om ulike kreftformer og kommunikasjon med pasienter.

Welcome to Health Hats, the Podcast, learning on the journey towards best health. We will learn what it takes to adjust to life's realities in the awesome circus of health care. Follow Health Hats, the Podcast on your favorite player. I am Danny van Leeuwen, a patient-caregiver activist, a patient with Multiple Sclerosis, care partner to my grandmother, mother, and son’s end-of-life journeys, a registered nurse, a person with health technology experience, and a leader in healthcare administration. I wear many hats. My guests and I muse about making health choices and decisions, communicating health information, sharing what works, and supporting each other. This episode is a sampler of interviews with Barby Ingle about managing pain; Jan Oldenburg about an integrated care plan; Janice Tufte about patient partnerships in research; Jane Beddall about managing conflict; and Amy Faeskorn about health and improvisation. I podcast to make a ruckus. Making a ruckus means sharing stories of learning on the journey towards best health. I'm trying to move the needle of health care a couple of degrees towards more self-confidence, more participation, more collaboration, more dignity and more inclusion. Wait a minute. I should tell you the truth. I'm a selfish person at heart. I'm a storytelling, patient, caregiver activist, living at peak capacity. I couldn't say that before my diagnosis. I podcast mostly for myself. My show notes are comprehensive with a full transcript and many resources.  Find the recent podcasts here https://www.health-hats.com/pod and show notes for this sampler hereFollow my blog, podcasts and resources through my website. See around the block.

Chat with Jan Oldenburg, a nationally recognized thought leader on personal health engagement focused on transforming healthcare and the physician-patient relationship through digital tools. In this podcast episode, we spoke about the language of goals and preferences, situational leadership, making a story from the noise of data, contextual education, and drinking from both ends of a fire hose. Blog subscribers: Scroll down through show notes to read the post. If you'd like to listen to the podcast, click here or the title Subscribe to Health Hats, the Podcast, on your favorite podcast player Please support my blog and podcast. CONTRIBUTE HERE Episode Notes Prefer to read, hard-of-hearing or deaf? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Introducing Jan Oldenburg 00:51. 1 The Language of Goals and Preferences? 03:55. 2 Situational leadership: Right style, right time 08:43. 2 Data is Noise, Make Me a Story 17:42. 4 A button'll do it – contextual education 21:50. 5 Drinking from both ends of a firehouse? 27:22. 6 Noise again, story again 32:31. 7 Questions? Answers when I need them 35:30. 8 Reinventing search 39:10. 9 Learning at the time of need 42:31. 9 A collaborative care plan in our lifetime 46:15. 10 No place in the EMR for a story 48:14. 11 Reflections 52:28. 11 Links Jan Oldenburg on LinkedIn Jan's website Twitter handle: @janoldenburg Participatory Healthcare: A Person-Centered Approach to Healthcare Transformation Engage! Transforming Healthcare through Digital Patient Engagement Patient Engagement Chapter of Medical Informatics, 3rd Edition Health IT Policy Committee Situational Leadership What is Situational Leadership? Situational Leadership II Measles and Rubella Initiative - Anti-vaccination movement More about the Wakefield studies from the Children's Hospital of Philadelphia Gullain-Barre fact sheet InfoButtons Health Loop Cancer101 MedRespond Notes Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, New Orleans Drummer, Composer About the Show Welcome to Health Hats, empowering people as they travel together toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  We will listen and learn about what it takes to adjust to life's realities in healthcare's Tower of Babel.  Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge.  Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements.  Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Introducing Jan Oldenburg Recently, I asked my neurologist, "Why am I receiving $100,000-a-dose infusions for my multiple sclerosis?" "What if I don't take this ridiculously expensive drug?" I'm a nurse, so I have a health background. He explained it well for me. Well enough that I understood most of the pieces of what he told me, but I didn't understand all of it together. I  Googled the infusion once, but haven't retained much of what I read.  I trust him.

Chat with Jan Oldenburg, a nationally recognized thought leader on personal health engagement focused on transforming healthcare and the physician-patient relationship through digital tools. In this podcast episode, we spoke about the language of goals and preferences, situational leadership, making a story from the noise of data, contextual education, and drinking from both ends of a fire hose. Blog subscribers: Scroll down through show notes to read the post. If you'd like to listen to the podcast, click here or the title Subscribe to Health Hats, the Podcast, on your favorite podcast player Please support my blog and podcast. CONTRIBUTE HERE Episode Notes Prefer to read, hard-of-hearing or deaf? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Introducing Jan Oldenburg 00:51. 1 The Language of Goals and Preferences? 03:55. 2 Situational leadership: Right style, right time 08:43. 2 Data is Noise, Make Me a Story 17:42. 4 A button’ll do it – contextual education 21:50. 5 Drinking from both ends of a firehouse? 27:22. 6 Noise again, story again 32:31. 7 Questions? Answers when I need them 35:30. 8 Reinventing search 39:10. 9 Learning at the time of need 42:31. 9 A collaborative care plan in our lifetime 46:15. 10 No place in the EMR for a story 48:14. 11 Reflections 52:28. 11 Links Jan Oldenburg on LinkedIn Jan's website Twitter handle: @janoldenburg Participatory Healthcare: A Person-Centered Approach to Healthcare Transformation Engage! Transforming Healthcare through Digital Patient Engagement Patient Engagement Chapter of Medical Informatics, 3rd Edition Health IT Policy Committee Situational Leadership What is Situational Leadership? Situational Leadership II Measles and Rubella Initiative - Anti-vaccination movement More about the Wakefield studies from the Children's Hospital of Philadelphia Gullain-Barre fact sheet InfoButtons Health Loop Cancer101 MedRespond Notes Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, New Orleans Drummer, Composer About the Show Welcome to Health Hats, empowering people as they travel together toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  We will listen and learn about what it takes to adjust to life's realities in healthcare’s Tower of Babel.  Let's make some sense of all this. To subscribe go to https://www.health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge.  Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements.  Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Introducing Jan Oldenburg Recently, I asked my neurologist, "Why am I receiving $100,000-a-dose infusions for my multiple sclerosis?" "What if I don't take this ridiculously expensive drug?" I'm a nurse, so I have a health background. He explained it well for me. Well enough that I understood most of the pieces of what he told me, but I didn't understand all of it together. I  Googled the infusion once, but haven't retained much of what I read.  I trust him.

Today's guest: Jan Oldenburg | Founder & Principal, Participatory Health Consulting Greg and Jan talk about technology's role in elevating participation in healthcare & the importance of managing change - not just instigating it. They wrap with a discussion on how the role powerful patient stories play in driving systemic change. Important Links: Participatory Health Consulting web site: http://janoldenburg.com/ Jan's LinkedIn: https://www.linkedin.com/in/janoldenburg/ Jan's Twitter: https://twitter.com/janoldenburg Jan's Amazon Author Page: https://www.amazon.com/Jan-Oldenburg/e/B01K0ERY04/ref=dp_byline_cont_book_1  For more, visit the DataPoint show page at http://touchpoint.health/shows/datapoint/.

Jan Oldenburg, FHIMSS, is passionate about using digital tools to build a healthcare system where patients and caregivers participate as partners. She currently advises and mentors startups and consults with organizations who want to understand the evolving digital health landscape as the Principal in Participatory Health Consulting. Ms. Oldenburg has broad experience within all aspects of the healthcare ecosystem, including payers, providers, and integrated delivery systems. Most recently she was a Senior Manager in EY's Health Advisory Practice. Prior to joining EY, Ms. Oldenburg was the Vice President of Patient and Physician Engagement in Aetna's Accountable Care Solutions organization, where she worked with provider organizations to build collaborative ACO solutions. She also spent seven years as a manager and senior manager in Kaiser Permanente's Digital Services Group, directing strategy and implementation for web and mobile products including clinical, payment, and administrative capabilities. Ms. Oldenburg has been a principal in several consulting companies focused on using the digital capabilities effectively in healthcare to engage consumers. She is the primary editor of Engage! Transforming Healthcare Through Digital Patient Engagement, published by HIMSS press and winner of “Best Book of 2013” honors at HIMSS 2014, as well as the principal Editor of Participatory Healthcare: A Person-Centered Approach to Transforming Healthcare to be published by CRC Press in June, 2016. She also is the author of the “Personal Health Engagement” chapter in the Third Edition of Medical Informatics, published in March, 2015 and the “Participatory Medicine” chapter of The Journey Never Ends, published in March, 2016, as well as a number of articles and blog posts. Ms. Oldenburg is the co-chair of the HIMSS Connected Health Committee and a frequent speaker and commentator on patient and physician engagement issues; she tweets @janoldenburg. 00:00 Jan talks about ‘Patient Engagement,' and why she's not a fan of the term. 03:00 Looking at an individual outside of the context of being a patient. 04:15 Shifting the healthcare mindset. 05:20 Shifting away from the hierarchies in medicine. 06:30 Looking at attitudes and values that organizations hold. 07:40 Education, Active Patients, Market Forces, Leadership, Rewards & Values, Digital Tools. 08:25 The three characteristics Digital Tools need: Connection, Convenience, Life Value. 10:45 Changing the attitudes about patients interacting with internet resources. 11:45 “Part of the role of being a Doctor is Coach.” 12:45 Participatory Healthcare, Jan's second book. 14:20 How to use Digital Tools to assist Physicians. 15:00 The importance at examining how we design tools. 17:15 “Have we really looked as carefully as we need to?” 20:00 “There's huge promise in the capabilities of technology and we're not using them to their full extent.” 25:50 “How can we design Clinics and Health Systems so it's about the convenience of patients.” 29:00 You can learn more at janoldenburg.com or on Twitter: @janoldenburg, and the Society for Participatory Medicine at participatorymedicine.org.

In our inaugural episode, we speak with Jan Oldenburg, a national expert on patient engagement and digital health. Jan shares her personal story about dealing with her husband's unexpected hospitalization and how that propelled her to be an advocate for patient empowerment. Her new book, Participatory Healthcare comes out this summer. You can learn more about her work at www.JanOldenburg.com. Learn more about ICmed at www.icmedonline.com.

Many Healthcare organizations have had love hate relationship with Social Media given privacy concerns, the belief the that social media is what you do in your spare time and other reasons.  In fact many of us can remember when access was blocked for every computer in our organization.  You have to meet your patients where they are though and increasingly that is on Social Media. In this episode, recorded at HIMSS16, we talk with Jan Oldenburg about various strategies that Healthcare organizations can use to get the most out of their Social Media engagement efforts. Please give us a 5 star review in iTunes, Stitcher, or Tunein if you appreciate the show! Visit us at www.HealthcareTechTalk.net Twitter https://twitter.com/Healthtechtalkn LinkedIn https://www.linkedin.com/company/healthcare-tech-talk?trk=biz-companies-cym Facebook: https://www.facebook.com/pages/Healthcare-Tech-Talk/711048778947195  

On the Wednesday, May 28th 2014 at 10AM Pacific/1PM Eastern time we chat with industry veteran Jan Oldenburg. More about our guest: Jan Oldenburg is a senior manager in Ernst & Young's Advisory Health Care Practice. Jan, a nationally recognized thought leader on patient engagement, has extensive experience working with accountable care organizations to create and implement patient-centered care and patient engagement programs. Jan was previously a vice president of physician and patient engagement at Aetna Accountable Care Solutions and a senior manager of the Digital Services Group at Kaiser Permanente Jan is a past president of the Northern California HIMSS Board, a HIMSS fellow and Vice Chair of the National HIMSS Connected Patient Committee. She served as the primary editor of Engage! Transforming Healthcare through Digital Patient Engagement, published by HIMSS press in March 2013. Oldenburg frequently speaks and writes about patient and physician engagement. Oldenburg is a graduate of Luther College and is based in Boise, ID.  Join us for an informative exchange.