Podcasts about boston drummer

Revisit 2019 travel to Spain with disabilities. A guest in other people's lives. Differentiating between sound and noise. Heightening senses, expanding voice. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem.. 1 Taking stock 02:41. 1 A guest in other people's lives 03:20. 1 Glad I'm not him 03:59. 2 Mobility enhancers rule! 05:25. 2 Gazing past our navels 08:04. 3 Differentiating sound and noise 10:02. 3 Reflection 11:17. 3 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Web/social media coach, Kayla Nelson Inspired by and grateful to Ann Boland, Linda and Mike DeRosa, Mary Lawler, Kate Higgins Sponsored by Abridge Links https://en.wikipedia.org/wiki/Camino_de_Santiago Maria Xenidou LinkedIn Impact Learning podcast Ame Sanders LinkedIn State of Inclusion website State of Inclusion Podcast The Podcasting Fellowship Related podcasts and blogs https://health-hats.com/camino-de-santiago-pilgrimage-of-sounds/ https://health-hats.com/days-6-12-camino-de-santiago-rejuvenated-inspired-not-yet-peaked/   About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem In May 2019 my wife, a couple of friends, and I went to Spain to hike the Camino de Santiago pilgrimage. Full disclosure, they hiked I road in taxis, in my electric wheelchair, and with canes. Now the same crew and two others are planning a trip in April 2022 to hike the Portugal Camino, God willing, and the creek don't rise. I thought I'd reprise the three episodes associated with the Spain adventure over the next couple of months to get myself back in the groove. Although the six of us have known each other for more than 55 years, have traveled together in various assortments and conditions including hitchhiking, foreign and domestic, we are all close to or over 70 with various aches, pains, and disabilities. Two years after the Spain Camino I am less mobile and less cocky, but all still rarin' to go. Plus, if not now, when? This episode, #19, was first aired May 3rd, 2019, six months into my now three-year podcasting journey. No sponsor yet. Less music. Again, still risk-taking and curious. Let's drop in on this flash from the past. Taking stock Hey there, glad you could join me. I'd like to pause and take stock of the past six months and look a bit to the future.

Coaching, critical to my success in life, art, politics, advocacy. Still need to do my own work & make choices. Listen to a session with one of my coaches, Jan Oldenburg. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem.. 1 The start of a business relationship 03:19. 2 Managing the swirl of me 05:50. 2 Coaching as a parent of a teen 07:21. 3 Advice, reflection, self-reflection, shades of grey 09:56. 3 First, build trust 11:02. 3 New position, new relationships, new levers 12:51. 4 Measurable outcomes of a strategic plan 16:24. 4 Changing roles at PCORI 17:02. 5 Vanilla management training. No nuts 20:08. 5 Clarifying personal mission, priorities, goals 24:26. 6 Staying in touch with, leveraging, advancing my constituency 26:27. 6 Capable of a delicate balance? 29:22. 7 Rare Disease as an inequity 30:15. 7 Keeping a pulse on Board effectiveness 32:23. 7 Leadership role on the Board 34:00. 8 The rest of my life 39:11. 9 Reflection 45:42. 10 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Web/social media coach, Kayla Nelson Rumours of Light image used by permission from Sue Heatherington @theWaterside Quiet Disruptors Inspired by and grateful to: Christine Goertz, Sharon Levine, Nakela Cook, Mike Herndon, Tanisha Carino, Kara Ayers, Connie Hwang, Luc Pelletier, Caryl Carpenter, Dorothy Cucinelli, Peter Tetrault, Tim Sullivan, Cynthia Meyer Sponsored by Abridge Links Related podcasts and blogs https://health-hats.com/pod141/ https://health-hats.com/chiropractic-operating-at-peak-performance/ https://health-hats.com/retirement-micro-stepping-with-mini-goals/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem Want to be a fly on the wall of a year-end session with my professional coach, Jan Oldenburg? You can hear the good, the bad, and the ugly of my process to hone and strategize my professional and personal work. Why would I share a coaching session? Is this TMI (Too much information) too private? Does it make me vulnerable? In last week's podcast, Matthew Hudson emphasized that you reveal something about yourself with the questions you ask, the problems you try to solve. Frankly, I am a bit anxious about sharing this, but you already know that I have little guile. I wear my life on my sleeve.

Embedded researcher, Matt Hudson. Partnerships, self-reflection, values, equity. Treat illness in service of community prosperity. An instruction manual. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem.. 1 Introducing Matthew Hudson 00:41. 1 Introducing an embedded researcher 02:58. 2 Skillset of an embedded researcher - like a musician 05:31. 2 Embedded researchers in the community 06:57. 3 Employing, partnering with a researcher 09:10. 3 Permission versus commitment to act on research 13:26. 4 Implementation science. Just do it. 14:56. 5 Embedded researcher as steward 17:20. 5 Research in the context of care delivery. Individual health, organizational health. 18:18. 5 Workforce context 20:16. 6 Continually learning what works 24:40. 7 Music, again 31:05. 8 Do we see the questions through the same lenses? Buffing out the scratches 32:29. 8 Reveal something about yourself, not easy 36:39. 9 Self-reflection, values, and health equity 38:36. 10 Partnership: engage with blind spots and strengths 42:40. 10 Reflection 45:05  11 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Web/social media coach, Kayla Nelson Rumours of Light image used by permission from Sue Heatherington @theWaterside Quiet Disruptors Inspiration from and gratitude for Geri Baumblatt, Russell Bennett, Meghan Berman, Jennifer Canvasser, Kristin Carman, Tracy Carney, Gwen Darian, Karen Fortuna, Crispin Goytia-Vasquez, Alma McCormack, Alan Richmond, Brendaly Rodriquez, Beverly Rogers, Thomas Scheid, Lisa Stewart, Freddie White-Johnson, Neely Williams Sponsored by Abridge Links Learning Health Systems by Matthew Hudson, General orders for the embedded researcher: Moorings for a developing profession. Patient-Centered Outcomes Research Institute Advisory Panel on Patient Engagement PCORI Patient Engagement Toolkit Related podcasts and blogs https://health-hats.com/pod150/ https://health-hats.com/pod148/ https://health-hats.com/pod137/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem These days, several interests swirl through my mind and heart: disparities and equity in healthcare, community-research partnerships, and continuous learning about health. Swirling sounds too pretty and neat.

Turn-around. Interview of Health Hats by Craig Constantine entitled, Rich, about my podcasting process. A ton of work to keep it fresh. Ruthless editing. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem.. 1 Jumping into podcasting with both feet 1 Following my nose 04:35. 2 Ton of work, keeping it fresh and manageable 06:06. 2 Ruthless editing 07:55. 3 Process of telling a story 10:08. 3 Grateful for the podcasting communities 13:56. 4 Honoring different brains 15:48. 4 Reflection 18:49. 5 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Web/social media coach, Kayla Nelson Inspired by and grateful to Steve Heatherington, Ame Sanders, Tania Marien, Fred Guitierrez, Jane Beddall, Curtis Cates, Amanda Blodgett, Carole Blueweiss, Katherine Cocks, Karena DeSouza, Heidi Frei, Suzanne Jones, Catherine Lynch, Alice Merry, Matt Neil, Dawn Powell Sponsored by Abridge Support Health Hats, the Podcast financially Related podcasts and blogs https://health-hats.com/pod132/ https://health-hats.com/make-a-ruckus-podcasting/ https://health-hats.com/pod143/ Links Podcasting Community Pod Buffet About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem From time-to-time readers and listeners ask me about my process for podcasting. Recently, Craig Constantine, a crony in podcasting, interviewed me about my podcasting journey. Craig's process is to record a 20-minute chat and publish it immediately without editing. For listeners, find a link to Craig's episode in the show notes. For readers, go here. Why do I republish an already published episode? I learn from different styles of production. Remember that I co-published a couple of episodes in the past few months with Mighty Casey Quinlan's Healthcare is Hilarious. I'll let you know my observations in the Reflections at the end. Jumping into podcasting with both feet Craig Constantine: Hello. I'm Craig Constantine. Health Hats: Hi Craig, I'm Danny van Leeuwen. I'm also known as Health Hats, and I'm known as Health Hats because I am a person with multiple sclerosis. I've been a care partner to several family members' end-of-life journeys. I'm a nurse, and I have led several Electronic Health Record implementations, and I've been in the C-suite of healthcare. So, I wear a lot of hats.

Dr. Kirsten Meisenger from the Cambridge Health Alliance engages long-standing community partners in telehealth usability with joy and grace. Deep. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem.. 1 Introducing Kirsten Meisinger 03:14. 2 Provider engagement, loving what you do 08:37. 3 Patient, provider, community engagement intertwined 10:51. 3 Telehealth, up in 60 seconds 12:12. 4 Long-standing patient experience partners 14:55. 4 When the world blows up 17:53. 5 Public health superpower 18:51. 5 Recognizing when it doesn't work 22:42. 6 Leadership at many levels 25:12. 7 Equity. Giving people what they need. 27:41. 8 Key points 29:41. 8 Reflection 32:27  9   Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Web/social media coach, Kayla Nelson Inspiration from Mary Ellen Cortizas, Neely Williams, Freddie White-Johnson, Joanna Siegel, Karen Martin, Kristin Carman, Libby Hoy, Dick Argys, Tania Dutta, Russell Bennett, Bonnie Engelbart Sponsored by Abridge Links Cambridge Health Alliance CHA Facebook Page CHA Healthy Now Blog Katie's Nutrition blog Transforming Clinical Practices Initiative National Collaborative for Health Equity (sponsored by NCQA) Related podcasts and blogs https://health-hats.com/pod122/ https://health-hats.com/minister-to-community-spirit/ https://health-hats.com/pod133/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem Lately the industry chatter about patient engagement has increased. Clients ask me to advise about patient engagement. What is patient engagement?  How can we increase patient engagement? Is patient engagement worth it? Where do we find people to engage? What's the business case for engagement? As time passes, my thoughts and advice change, and, frankly, I find myself at a loss to advise, even though I say patient engagement is my passion. Engagement from whose point of view, to what purpose? A person engaged in their health – Isn't everyone engaged in their health? My symptoms affect me. I'm in pain. I can't function as I'd like to. I'm sad. I'm anxious. I react. I manage, or I don't. I can accept, deny, adapt. I suffer, I advocate, I overcome. Maybe it's my parent's health or my partner's or my child's.  It's all engagement. I'm engaged in my health. A clinician engages in their patients' health.

My son. Mike, died 19 years ago, age 26. Wasn't born with a tattoo telling him how long he had to live. Blood, married, intentional families. Love & boundaries. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem 2021. 1 Open Hearts 2018 03:27. 1 Love myself 2002 04:43. 2 He met a girl 2018 09:50. 3 Birthday wishes for the old guy 2002 11:44. 3 Spiritual health 2018 12:40. 4 Lifetime warranty 2018 17:19. 4 Not personalizing death 2018 19:32. 5 Leave me a sign 2018 27:53. 6 Reflection 2020 30:00  7 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Sponsored by Abridge Thanks to these fine people who inspired me for this episode: Robert Doherty, Simon and Ruben van Leeuwen, Ann Boland, Anica Madeo, Andrea Condit, India Duncan, Lenore Nowicky Links Related podcasts and blogs https://health-hats.com/superpower-accepting-what-is-1-99/ https://health-hats.com/best-spiritual-health-dying/ https://health-hats.com/pod138/   About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem 2021 I wasn't born with a tattoo on my ass telling me how long I have to live. Welcome to the third anniversary of Health Hats, the Podcast, episode number 149. On November 15th, 2018, the first episode honored my son, Mike Funk, who died on November 18th, 2002, nineteen years ago, age 26, of metastatic melanoma. Mike, a wise poet, found his best spiritual health in that last year of his life. Hence, the most memorable sentence in my life. I wasn't born with a tattoo on my ass telling me how long I have to live.  I'm grateful to have known Mike, my son, our brother, our friend. I resurrect this episode to celebrate Mike and celebrate family – blood family, married family, intentional family. Mike was part of our intentional family. He was our son from other parents. Mike and I mused often about family especially in his final year. As you can imagine his intense feelings about his blood family and his intentional family colored those conversations. Ever the poet, we talked about the challenge of family as unconditional love, especially when you've been treated badly, neglected, abused, and left. We spoke about boundaries, unconditional love with boundaries, standing up for yourself,

These three stories, my doctor and me, equity in health systems, care of children with severe heart problems, all contain a problem desperately needing fixing, choices – some based as research, others not – some action taken or no action. How can we continually learn from experience, share that cumulative experience to inform future choice-making and action? Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem.. 1 Underwhelming response to brilliance 03:41. 1 Pitches, no home runs 05:26. 2 Invoke curiosity without commitment 8:47. 2 Reflection 11:00. 3 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn via email DM on Instagram or Twitter to @healthhats Credits Music, Mou's Blues by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Web/social media coach, Kayla Nelson Inspired by and grateful to Amy Price, Duane Reynolds, Matthew Hudson, Laura Marcial, Melissa Reynolds Sponsored by Abridge Support Health Hats, the Podcast financially Links A framework for value-creating learning health systems AHRQ About Learning Health Systems Pregnancy and Fibromyalgia by Melissa Reynolds   Related podcasts and blogs https://health-hats.com/accessible-yoga-honor-your-body/ https://health-hats.com/everyone-included-research/ https://health-hats.com/hardwiring-continual-learning/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem When first diagnosed with Multiple Sclerosis, my neurologist told me he was expert in treating groups of people (populations) with MS, but he didn't know crap about me. His job was to learn about me, and my job was to learn about MS. I shared what was important to me in my life, and he taught me about MS and treatments. We slowly learned what worked for me in care and treatment and what didn't and re-examine year after year. In last week's podcast episode, we chatted with Duane Reynolds from the Just Health Collaborative. He guides health systems in creating cultures of belonging, enabling a fair and just opportunity for everyone to achieve optimal health. I wonder what worked and what didn't among the interventions his clients tried? When I worked at Boston Children's Hospital, I was fascinated by their Cardiology Department's  Standardized Clinical Assessment And Management Plans (SCAMPs) to promote, not require, care standardization. SCAMPs “offered a clinician-designed approach to promoting care standardization that accommodates patients'...

Duane Reynolds of the Just Health Collective reflects on a layered approach to combating racism. Individuals drive organizations that live within systems. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem.. 1 Introducing Duane Reynolds and the Just Health Collective 03:13. 2 Research into key drivers of health inequity 07:08. 3 How do root causes and interventions align? 09:53. 3 Organizations and communities operate on different time frames 12:55. 4 Individuals drive organizations that live within systems 16:06. 4 Eureka! Belonging. 18:45. 5 Reading the room 20:53. 5 Transformative change for employees 23:46. 6 Difficult conversations at home - the learning journey 26:41. 7 My education and support systems 30:45. 8 Reflection 33:34. 8   Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Web/social media coach, Kayla Nelson Inspiration from Fatima Muhammed Ighile, Neely Williams, Lisa Stewart, Ame Sanders, Matthew Hudson, Robert Doherty, Jason van Leeuwen, Benjamin Anderson, Nikki Montgomery, Michelle Whitt, Lisa Masinter, Janice Tufte Sponsored by Abridge Links Here is a direct link to the Just Health Collaborative website the Institute for Diversity and Health the Institute for Diversity and Health of the American Hospital Association Centering Health Equity podcast:  https://centering-health-equity.squarespace.com/ Medium:  https://medium.com/just-health-collective Just Health Collective Village Benjamin Anderson   Rural Health Equity for the Colorado Hospital Association Invisible Woman, a plastic model of the human body with a removable pregnant abdomen Related podcasts and blogs Here are some of many episodes including health equity https://health-hats.com/pod110/ https://health-hats.com/pod133/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem In 1960 I discovered that I didn't belong. I was eight. My parents supported Kennedy for President. Everyone else's parents supported Nixon. My eyes opened. My family was different. My parents were active in the Fair Housing Movement. They hosted businesspeople of color from Africa. No one else knew anyone of color who wasn't a maid or landscaper. Boys carried sweaty, folded-up pictures of scantily dressed girls they got from their older brothers and giggled about them in the restroom.

I'm not the sharpest knife in the musician drawer. Disheartening. I wish I were better. If wishes made me play better… All I can do? Keep at it. In the last two years. I've gone from “I can't do this, I'm quitting” to “I need to be better.” One foot in front of the other. If this were health, I'd advise that you never get better in a straight line- always many dips and rises. No dip, no rise. I do like the rise. Gotta live with the dips. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) I'm as good as I am 00:28. 1 Hiding, confidence, woodshedding 02:27. 1 Gigging, a dose of reality 04:42. 2 Peaks and valleys 05:52. 2 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn via email DM on Instagram or Twitter to @healthhats Credits Music, Mou's Blues by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Music, Midnight Mambo composed by Oscar Hernandez, played by Lechuga Fresca, Latin Band Web/social media coach, Kayla Nelson Inspired by and grateful to Joey van Leeuwen, Oscar van Leeuwen, Leon van Leeuwen, Kayla Nelson, Jeff Harrington, Jennifer Keeney, Cynthia Meyer Sponsored by Abridge Support Health Hats, the Podcast financially Links Related podcasts and blogs https://health-hats.com/listen-to-the-music/ https://health-hats.com/pod120/ https://health-hats.com/pod109/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show After last week's arcane episode (Arcane means understood only by a few) about Cost in Healthcare, here's something lighter and more familiar – plying a craft as a dedicated amateur, in my case, as a musician. I'm as good as I am I left for the gig determined and fearful. I've spent six to ten hours a week playing my horn since I got the new baritone sax stand. I hadn't played for eight weeks with my back pain and inability to carry the weight of the fifteen-pound horn on my shoulders and neck. The new stand holds the sax independently so I can play sitting or standing. Working with my long-time teacher, Jeff, I've made considerable progress on feeling the form of the tunes, keeping my place with decent phrasing for my solos. I've made it a point to solo on three tunes each session the band plays, a stretch for me. Our alto player couldn't make the gig; I would be one of two horn players. I was determined to solo on six tunes to fill the gap, I felt the fear about my ability or lack thereof. I'd be as good as I am – sweaty hubris, to be sure. Hiding,

What does healthcare cost mean? I can't explain it. Listen to Matt Pickering from Nat Quality Forum help us out. Consider serving as a patient rep with NQF. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem.. 1 Introducing Matthew Pickering 05:37. 2 Value to whom? 07:48. 3 Moving from volume to value 11:37. 3 Quality and cost measures help choose plans and providers 13:41. 4 Consumer seats at the table 15:06. 4 Cost, is it real? 17:09. 5 Measures inform and inspire, don't they? 22:27. 6 Cost is different. Smoke and mirrors? 25:23. 6 Do consumers use this cost and quality information? 27:45. 7 Who would want to sit on this cost committee? 30:51. 8 Participating 34:33. 9 Reflection 36:40  10 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Web/social media coach, Kayla Nelson Inspiration from John Shaw, Danny Sands, Cynthia Cullen, Ellen Schultz, Janice McCallum, Michael Mittelman, Edwin Lomotan, Lacy Fabian, Michael Millenson, Amy Price, Tania Dutta, Uma Kotagal Sponsored by Abridge Links Matthew Pickering LinkedIn National Quality Forum (NQF) Cost and Efficiency Measure Standing Committee Better Ways to Cut Healthcare Waste What Is Value-Based Healthcare? New England Journal of Medicine PCORI: Patient Engagement CMS: Person and Family Engagement Related podcasts and blogs https://health-hats.com/zen_relationshipcentered_measure/ https://health-hats.com/pod137/ https://health-hats.com/infodemiology-too-much-not-enough/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem If a grocery store, car dealer, hardware store, eBay, Amazon charges $100 for something, how much does it get paid? $100. If a healthcare provider (doctor, physical therapist, clinic, hospital) charges $100, how much does it get paid?  It depends. It depends on the type of insurance, type of patient, service type. Type of insurance might be Medicare, Medicaid, private, none. Patient type means young, old, tall, short, full head of hair, bald, parent, grandparent, child.  No, that would be too easy.  It has nothing to do with the patient. It's about the relationship with the clinician - acute episode, continuous relationship, referred by another clinician, etc.). Specific types of service (medical, surgical, X-ray, lab, radiation therapy, preadmission testing, more than 200 types).

Innovation is not like switching on a lightbulb for the world. Rather it's local iterative, persistent steps. Thoughts from the Patient Experience Symposium. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem.. 1 Oy, the noise in my head 02:09. 1 Let's start positive. 03:14. 1 Research and innovation 06:18. 2 Prioritizing innovation – limits 08:32. 3 Innovations in engagement – innovators need innovative settings 09:04. 3 Reflection 09:50  3 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Web/social media coach, Kayla Nelson Photo by Ross Findon on Unsplash Inspired by and grateful to Jan Oldenburg, Kristin Carman, Joanna Siegel, Juhan Sonin, Laura Marcial, James Harrison Sponsored by Abridge Support Health Hats, the Podcast financially Links Patient Experience Symposium COVID-19 Through the Eyes of an American Refugee: A Story of Engagement Co-Designing Telehealth with Patients the Cambridge Health Alliance the Society of Participatory Medicine Hospitals Collaborate to Ensure COVID Care for Every Coloradan Kaiser Permanente funds community health innovations Patient-Centered Outcomes Research Institute, Request for Information: Science of Engagement Funding Initiative Harlan Krumholz Keynote Patient-Powered Research Related podcasts and blogs https://health-hats.com/community-rocks/ https://health-hats.com/cinderblocks4-medical-advocacy-at-its-best/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem As I left the Patient Experience Symposium in Boston, (Yes, an in-person conference. How weird!) I felt schizophrenic. On the one hand, has the healthcare industry progressed at all hardwiring the improvement of patient experience? On the other, OMG, so much innovation! I listened to dedicated, diehard patient experience professionals teeming with frustration at the setbacks occurring during COVID-19 days. Families excluded from the bedside; people dying alone; active, engaged, mature patient-family infrastructure canceled, dying on the vine. I also sat rapt, hearing diverse community representatives inspired by collaborative local COVID-19 problem-solving. In this episode, I will muse about healthcare innvation, while trying to stay positive. Thanks to the Society of Participatory Medicine for subsidizing my attendanc...

Take a brief break with several six-word caregiver poems, like 'Pillow, Pills, Poop, Piss, and Pain' plus a poem about me from The Good Listening Project. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem.. 1 Six-word caregiving poems 02:37. 1 A Guide to Pathological Optimism 04:38. 2 Reflection 05:34  2 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Web/social media coach, Kayla Nelson Photo by Jon Tyson on Unsplash Inspired by and grateful to Jan Oldenburg, Cynthia Meyer, Steve Heatherington, Jane Beddall, Heidi Frei, Tania Marien, Suzanne Jones, Bob Buckley, Gabrielle Pitman, Sue Fantl Spivack Sponsored by Abridge Support Health Hats, the Podcast financially Links Good Listening Project Related podcasts and blogs https://health-hats.com/retirement-micro-stepping-with-mini-goals/ https://health-hats.com/share-the-stories-help-the-helpers/ https://health-hats.com/the-silence-between-the-notes/   About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem Hello, fine listeners and readers. This is my 143rd episode and my 510th post. I began weekly blogging on July 24th, 2012, and weekly podcasting on November 28th, 2018. I've missed two posts in nine years. A short episode on mic- just me talking for 10 to 30 minutes- takes five to twelve hours to produce. This episode took six hours. A full 40-to-60-minute interview takes 12 to 40 hours to produce. Yikes. While I enjoy almost every minute of doing it, I feel the pressure of maintaining this production level and quality. A few months ago, I shifted to alternate weeks of interviews and on mic episodes. That reduced the effort. Now I'm going to give myself a break- not stop- because I love it. But not pressure myself to produce every week. So, I will miss some. I'm letting you know. Thanks for your continuing support and support from our sponsor, Abridge, going into our third year together. And as always, thanks to Kayla Nelson and Joey van Leeuwen. You helped me make this great. Thank you. Six-word caregiving poems So, let's start with six-word caregiving poems. For this week, from the past, and it's from an episode on January 13th, 2019. Blood, sweat, tears. Shared by two. Helping one end and another begin. Disaster that ultimately gives back.

Some people pull hand-over-hand for strands of hope and opportunity in the quicksand of tragedy. The entire family strains to recover from the grief of addiction. I appreciate Sarah Cloud's person-first approach. People are expert in their own lives. Expert means they know much. Experts still need help connecting dots, creating and executing plans, facing pain, and loving self. Check out Sarah's series about Mama and Papa Paca.  Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem.. 1 Introducing Sarah Cloud 01:31. 1 Realizing health is fragile 04:02. 2 Person-first: Expert in our lives, even in a crisis 06:10. 2 Building a crisis management program at Advocates 09:16. 3 Recognizing success 11:05. 3 Fatalities drop 26% 13:55. 4 Children managing their crises -Mama and Papa Paca 18:26. 5 Honoring Sean Staunton 22:24. 6 Why do this podcast episode? 24:37. 6 Reflection 27:13. 7 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Web/social media coach, Kayla Nelson Inspiration from Steve Heatherington, Chris Gordon, Lisa van Leeuwen, Gabriel Nathan, Keith Scott Sponsored by Abridge Links The link to Sarah's children's series is  https://mamapaca.com/. The link includes guidance for introducing the books and themes to reinforce.     Boston Bulldog Running Club Learn to Cope Handle with Care Plymouth County Drug Endangered Children Initiative Plymouth County National Alliance for Drug Endangered Children Sean Staunton obituary PCO Hope To the Moon and Back Alpaca Tribe podcast Related podcasts and blogs https://health-hats.com/help_the_helpers_in_crisis/ https://health-hats.com/gratitude-in-loss-together/ https://health-hats.com/peer-support-patience-and-kindness/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem What happens to the children orphaned by COVID19 or overdose once the immediate crisis passes? How can communities respond to prevent or lessen the crises? What tools can families and helping people access? No one in my varied career had a more comprehensive, sensible approach to crisis management than Sarah Cloud. Sarah is a force of nature. Introducing Sarah Cloud Sarah Cloud received a Master of Social Work from Boston College in 1996 and a Master of Business Administration in 2018. During her career, Sarah has been recognized for her leadership through award...

Are you a patient-caregiver activist winding down? Let's chat and hand off to younger people feeling their way & support them as they perceive their needs. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Winding down. 1 The Health Hats of Tomorrow 02:31. 1 Legacy 03:23. 1 Succession planning 04:42. 2 The movement cycle 06:46. 2 Collaborate? 07:54. 2 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Photo by Brett Jordan on Unsplash Web/social media coach, Kayla Nelson Mambo Inn composed by Mario Bauza and played by Lechuga Fresca Latin Band Inspired by and grateful to Bill Adams, Freddie White Johnson, Beverly Rogers, Jan Oldenburg, Neely Williams, Thomas Scheid, Pancho Chang, Matt Cheung, Janice McCallum, Casey Quinlan, Dave DeBronkart, Regina Greer-Smith, Sharon Levine, Philip Posner, Janice Tufte, Jane Sarasohn-Kahn, Susan Woods, Michael Millenson, Peter Elias, Cynthia Meyer Sponsored by Abridge Support Health Hats, the Podcast financially Links Related podcasts and blogs https://health-hats.com/retirement-micro-stepping-with-mini-goals/ https://health-hats.com/share-the-stories-help-the-helpers/ https://health-hats.com/caring-for-parents-its-their-life-open-the-door/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Winding down As a direct care nurse, I sought to put myself out of business one patient at a time. As a boss, I had succession planning as top of mind, ensuring the team continued to operate without me if I got fired, laid off, or run over by a bus. Now I'm winding down. I'm past my prime.  I'm seasoned. I'll be 70 this year. What legacy do I leave? Who's coming up in the patient-caregiver activist world. How can I support the next generations of activists? Legacy includes spirit, inspiration, a written and oral body of work, plus policy and practice change hardwired into teams, organizations, and communities. Succession planning includes mentoring, coaching, mastermind groups, and opening more paid seats at the table. Goodness, stated like that, it feels like more work rather than winding down. The Latin band Lechuga Fresca plays Mambo Inn, the music behind the podcast. In addition, thanks to Joey van Leeuwen who creates the amazing music for my podcast, heard here in the intro and outro and our sponsor's message,

Person-first measurement of value in healthcare. Chat with Jennifer Bright @IVI_Health. Problem-solving led by people making clinical decisions. Check it out. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem.. 1 Introducing Jennifer Bright 02:38. 2 Who's in charge here? Patient agency. 06:20. 3 Value - what, for who? Magic math. 08:11. 3 Value from a person point of view, Measurable? 10:32. 4 Balance - cost, quality, outcomes 13:17. 4 Value to a caregiver? lost wages, burnout, illness 14:58. 5 Person-first problem solving – listen 17:36. 5 Commonalities: fatigue, function, loneliness, pain, angst 19:47. 6 Aligning measurement and innovation with what people need 21:19. 6 Leadership voice from patients and patient communities 24:15. 7 IVI Business Model 26:18. 8 Multi-stakeholder advisory groups 27:35. 8 Variation within diversity 29:27. 9 Finding IVI 31:03. 9 Strategy and tactics. Inspire and motivate 34:05. 10 What problem are we solving? 37:29. 11 Reflection 39:43  11 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Web/social media coach, Kayla Nelson Inspiration from Sara Traigle van Geertruyden, Libby Hoy, Tanisha Carino, Matthew Pickering, Cynthia Cullen, John Shaw, Kristin Carman, Geri Baumblatt Sponsored by Abridge Links Innovation and Value Initiative Main site: https://www.thevalueinitiative.org  IVI Principles:  https://www.thevalueinitiative.org/principles-for-value-assessment-in-the-us/ Membership:  https://www.thevalueinitiative.org/membership/ Partnering with Patients:  https://www.thevalueinitiative.org/partnering-with-patients/ Partnership to Improve Patient Care National Quality Forum Dr. Dana Safron PCORI: Patient-Centered Outcomes Research Institute Related podcasts and blogs https://health-hats.com/difference_collaborative/ https://health-hats.com/teachable-spirit-patient-family-advisors/ https://health-hats.com/partner-with-people-at-the-center-end-to-end/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem Value propositions can be vague, aspirational, and ethics remote.  Think: Uber – The Smartest Way to Get Around; Apple iPhone – The Experience IS the Product; Walmart – Everyday Low Prices; Google – Search Engine for the World. Imagine these: XYZ Hospital – Money back guarantee Acme Specialty Services – On-time appts or we pay you ...

Altered states. Normal is a dryer setting. Adapting to life. Patient hacking. With the brilliant, hilarious, passionate Mighty Casey Quinlan. Life is good. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem.. 1 Altered States. Normal is a Dryer Setting. 02:27. 1 Abilities. Disabilities. Adjusting and Adapting. 04:34. 2 Planning to swim, eat out, live 08:46. 3 Oh, that old heavy horn 11:33. 4 #PatientHackers. @PatientHackers 13:25. 4 Defcon 14:41. 4 Help me hack it, please 18:02. 5 C U Soon. Navigating in person during Covid 22:31. 6 F Cancer, I Ain't Done Yet 24:11. 7 Reflection 25:09. 7 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Web/social media coach, Kayla Nelson Inspired by and grateful to Jan Oldenburg, Andrea Downing, Janice McCallum, Janice Tufte, Susannah Fox Sponsored by Abridge Links https://twitter.com/PatientHackers https://defcon.org/   https://mightycasey.com/healthcare-is-hilarious/ How to Deal with Difficult Patients: A Message from Casey Quinlan, Patient Advocate Related podcasts and blogs https://health-hats.com/pod127/ https://health-hats.com/pod132/ https://health-hats.com/temporarily-able-bodied-people-were-in-this-together/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem Welcome to the third in a series of conversations with Mighty Casey Quinlan of Healthcare is Hilarious fame. We both take the raw audio file and publish our production. Casey published her version last week entitled Altered States. Mine is called Normal – a Dryer Setting. We used each other's words with different perspectives on the same conversation. Fortunately, we're both doing better than we were a few weeks ago. The prednisone erased my debilitating pain, I bought a new stand for my baritone sax, so I don't carry the weight around my neck through my spine.  I graduated from 5 minutes a session to 30 minutes at a time, even rehearsing with my band last night, and changed position with each tune. I'm walking better, though my altered state allows for less distance than before.  I stopped taking a medication that dropped me into despondency. Life is good. In addition to at the end, upfront, let me thank Joey van Leeuwen who creates the amazing music for my podcast, and Kayla Nelson,

Opening my heart. Grieving the loss of Robert Doherty, loss of others, loss of self. Coping with life. Doing our best. No regrets. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem.. 1 Meeting and working with Bob Doherty 01:39. 1 74 years old, learning from a young man 02:42. 1 Deconstructing grief 04:54. 2 Grieving loss of self 08:16. 2 Death in your life. Death in my life 09:38. 3 Coping with life, doing our best 12:58. 3 No regrets 14:20  4 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Web/social media coach, Kayla Nelson Inspired by and grateful to June Richardson, Dorothy Cuccinelli, Luc Pelletier, Lou Desso, Peter Semenza, Lynn Wilson, Judy Thomas, MarlaJan Wexler, Gregor MacDonald, Frank Lanzilote, Carl Roberts Sponsored by Abridge Support Health Hats, the Podcast financially Links Robert Doherty 1944 - 2021 Related podcasts and blogs https://health-hats.com/superpower-accepting-what-is-1-99/ https://health-hats.com/covid19-end-of-life-choices/ https://health-hats.com/manage-the-stress-you-can/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem My first podcast episode took an interview my dear friend, Bob Doherty, videotaped with my son, Mike Funk, a couple of months before Mike died in 2002. I took the soundtrack of that VHS tape and overlayed a chat I recorded with Bob in 2018.  Bob and my unusual, deep relationship began when he was my boss at St. Peter's Addiction Recovery Center (listen to last week's episode for a brief description of some of the work we did together). My wife and I became dear friends with Bob.  Bob died on August 3rd of complications of stomach cancer. I grieve. Meeting and working with Bob Doherty 01:39 Bob and I first met when he interviewed me for a job.  I asked him for his references. He laughed (great laugh) and gave me a couple of references that I called. Bob's a good guy, can be challenging, doesn't suffer fools gladly. Bob loved to tell that story whenever he could.  Bob said to me as his Director of Quality Management, you're in the difficult position in that you're the conscience of the company and you want to be liked. How do you navigate that?  He also said that I was an acquired taste.  I told that story as often as I could. Bob was a breath of fresh air. 74 years old,

Communities take action to improve. Shared measurement lights the way. Simple, routine, effective. Lessons learned from the field with Tania Dutta & Uma Kotagal Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem.. 1 Introducing Tania Dutta and Uma Kotagal 02:44. 2 Aligning systems, communities, equity, shared measurement 08:22. 3 Scientific, valid, meaningful, and warm 14:51. 4 Minus nine to nine 16:53. 5 Healthy births to graduation from third grade 17:51. 5 Infant mortality, prematurity, poverty, inequities 19:51. 5 Scientists, clinicians, and community members together plus deep design work 21:40. 6 Guiding principles 24:56. 6 Getting measurement right. Parsimonious, discrete, improvable 27:06. 7 Everybody meets. Everybody talks. 30:00. 8 Co-creation 30:43. 8 San Antonio 2020 33:59. 9 Lessons learned for other communities 36:11. 10 Listening sessions 37:58. 10 Brilliant ideas insufficient. Roll up our sleeves. Trust and humility. 39:22. 10 Technical side of improvement 42:37. 11 A seat at the table, not on the menu 43:39. 11 Leadership. Willing to see and act. Build capacity. 44:55. 12 Reflection 48:23. 13 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Web/social media coach, Kayla Nelson Photo by Isaac Quesada on Unsplash Photo by Christina @ wocintechchat.com on Unsplash Photo by Franco Antonio Giovanella on Unsplash Inspiration from Ellen Schultz, Robert Doherty, Lynn Wilson, Matthew Pickering, Cynthia Cullen, Shelley Fuld Nasso, Mary Barton,  Michelle Lenox, James Harrison, Bevin Croft, Neely Williams, Ame Sanders Sponsored by Abridge Links  Aligning Systems with Communities to Advance Equity through Shared Measurement All Children Thrive Helping Cincinnati's 66,000 children be the healthiest in the nation through strong community partnerships SA2020 Explore San Antonio's progress Southern California Association of Governments (SCAG) LA County Homeless Initiative Coalition for Community Schools Vermont Health in All Policies Related podcasts and blogs https://health-hats.com/zen_relationshipcentered_measure/ https://health-hats.com/pod122/ https://health-hats.com/minister-to-community-spirit/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem I call myself a patient-caregiver activist, a change agent, always gravitating toward action.

Release endorphins in presence of professionalism & diversity. Open heart, boost learning, respect, action. Don't waste time, give hurt dignity. Care & artistry Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Convening diversity for action. 1 Professions and professionalism 2:03. 1 Responsibilities of professionalism 03:29. 1 Open your heart. Likely to get burned. Then what? 04:52. 2 Recharging my batteries. Thank you. 06:29  2 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Photo by UNIBOA on Unsplash Photo by Roberto Nickson on Unsplash Photo by Kristina Litvjak on Unsplash Web/social media coach, Kayla Nelson Inspired by and grateful to: Curtis Cates, Tania Marien, Kathy Cocks, Ame Sanders, Amy Price, O Horvath, Amanda Blodgett, Fred Guitierrez, Steve Heatherington, Jane Beddell, Bob Buckley, Karena DeSouza, Heidi Frei, Dafna Gold-Melchior, Suzzanne Jones, Matt Neil, Dawn Powell Sponsored by Abridge Support Health Hats, the Podcast financially Links Related podcasts and blogs https://health-hats.com/pod135/ https://health-hats.com/pod134/ https://health-hats.com/pod128/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Convening diversity for action I continue to survive and thrive. I sit around three to six tables every week with people asking questions, solving problems, figuring out how to learn, and getting things done.  Endorphin flow guaranteed. More flow, best results, most enjoyment, and inspiration when those people around the table have varied skills, experiences, and backgrounds. When I convene or join these gatherings, I seek colleagues with variation and diversity, especially different from mine. Naturally, in these situations, some people don't know each other. When they first gather, they might feel confident, at ease, unsure, intimidated, confused, hopeful, curious. Participants join to fill different or several roles: convener, leader, cheerleader, sponge, coach, doer, expert, scribe.  Sound familiar? Professions and professionalism When a diverse group of people gathers for the first time and look around the room, some look at themselves and compare. Who's who? Who's up, who flashes, who do I know?  A few might feel professional, and others not so much. Merriam-Webster defines a profession as a calling that requires...

In my youth, sex roles; today, gender identity. While rich with LGBTQ+ in my families, I know so little. O Horvath generously walks us through their transition. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Web/social media coach, Kayla Nelson Photo by Sharon McCutcheon on Unsplash Inspiration from Michelle Horvath, Chris Gordon, Betsy Swift, Jacky van Leeuwen, Luc Pelletier, Jennifer Keeney, Rebecca Archer, Lillie Rizack, Carol Murray, Jane Spielman Sponsored by Abridge Links   Related podcasts and blogs https://health-hats.com/giving-tanks/ https://health-hats.com/children-of-the-sun-earth-and-moon/ https://health-hats.com/pod111/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem My father, a homosexual deep in the closet, died in 1972 at age 45 without coming out. I was 20. My  dad's brother never lived in the closet. When eight years old, I asked my uncle why he never married. ‘I'm homosexual.' OK, no big deal. That explained it—good information to have. Growing up, I knew I was different. I never approached being a jock. I had friends who were girls. I never played ball with my dad. He got manicures. I didn't understand masculine and feminine. In my first year of college in 1969, I took a course in Social Psychology of Sex Roles, opening my eyes to Women's Lib, my place and gender identity and introducing me to long-lasting friends and partners. Gravitational pull? Although I didn't yet know about my dad. On September 11th (yes, that 9/11), I met Michelle Horvath at a conference in Reno, NV. We both lived in upstate NY, and since we couldn't fly or rail home, we rented a car and drove home together. We bonded during those several days, became close friends. My boy, Mike Funk, died the following year. Michelle, her husband, and two children came to the memorial service.  Several years ago, Michelle told me that O was transitioning. We spoke about her love for her children and grief at losing a daughter. Michelle adjusted. O expressed an interest in recording a conversation for my podcast about transitioning. Honored and trusted only begin to express my emotions at this opportunity. Introducing O Horvath While preparing for this recorded conversation O said, For the podcast, I'd like to be referred to as O /O Horvath.

Abilities changing. Can't play my horn. Acute pain on top of chronic pain. Need new solutions. Right-sizing virtual and in-person visits. Maintain optimism. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Life without sax?  Oh, no! 1 Acute pain, chronic pain, which? 02:34. 1 Face and adjust to changing abilities 04:15. 1 Right-sizing virtual and in-person primary care 06:37. 2 Maintaining spirit, pathological optimism 07:45. 2 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Duke Ellington's Caravan is played by Lechuga Fresca. Ryan Vasios, alto sax, Josh Rosenstock, bass, Karen Welling, keys, Andrea Cowen and Danny van Leeuwen, percussion Web/social media coach, Kayla Nelson Photo used by permission from Diana Beidler Simonton Inspired by and grateful to Sarah Anne Shockley, David Edwards, Penny Cowan, Melisa Reynolds, Cynthia Covert, Casey Quinlan Sponsored by Abridge Support Health Hats, the Podcast financially Links The Pain Companion Related podcasts and blogs https://health-hats.com/blessings-in-chronic-pain/ https://health-hats.com/chronic-pain-a-jealous-narcissist/ https://health-hats.com/chronic-pain-management-science-art-experiment/ https://health-hats.com/about-mypain/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Life without sax?  Oh, no! I haven't been able to play my baritone saxophone for a few weeks.  I'm bummed and worried. I often speak about my health goals: progress as slowly as possible, don't fall, don't mess with my pathological optimism, and continue playing the baritone saxophone.  I haven't been able to play due to issues with my back, decreasing mobility, and the weight of the big 25-pound horn hanging around my neck. I've been playing an average of an hour a day for the past 18 months. The more I play, the more equipment I accumulate and lug around.  One place I rehearse weekly has 2 flights of steep steps.  It's been getting more difficult and riskier to climb those stairs. I know that I could get band mates to haul equipment for me. That's not the problem. I haven't been able to stand and play for 15 years. I sit. But I spent the last couple of weeks not able to sit for more than 15 minutes at a time. If I can't sit and hold the sax with a shoulder harness, I can't play. What are my options?

US worse in maternal mortality among rich nations. Black women 2.5x more likely to die than white women. Drs. Whitt & Masinter discuss fragmented care and info. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem.. 1 Introducing Drs. Whitt and Masinter 04:58. 2 Disparities in access to outpatient maternal health 07:08. 3 Transitions of Care and outcomes in maternal healthcare 13:37. 4 A long-known, worsening, unsolved problem 17:26. 5 Pushing up regulations and financial incentives hills 24:51. 7 Clinicians that look like you 25:36. 7 Research what we know or study potential solutions? 27:12. 7 Low-hanging fruit gone 29:50. 8 Hyper-local solutions 31:40. 9 Holes in our data, gaps in our knowledge 33:49. 9 How can we, mere mortals, participate? 37:38. 10 Wave your magic wand and do what? 40:23. 11 Health Information Exchanges HIEs 41:39. 11 Integrating public health/community resource use 43:36. 12 Reflection 47:24  13 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Web/social media coach, Kayla Nelson Inspiration from Julia Skapik, Lillie Rizack, Maria Michaels, Ellen Schultz, Linda DeRosa, Anica Madeo, Bevin Croft, Bonnie Englebart, Liz Salmi, Regina Holliday, Jane Sarasohn-Kahn, Ame Sanders Sponsored by Abridge Links CDC Maternal Mortality Federally Qualified Health Centers OCHIN, the Oregon Community Health Information Network. Alliance Chicago, advancing community health through collaboration, technology, and research Health Populi What Poor Birth and Maternity Outcomes in the U.S. Say About American Healthcare & “Infrastructure” United States core data for interoperability United States Core Data for Interoperability (USCDI) The United States Core Data for Interoperability (USCDI) is a standardized set of health data classes and constituent data elements for nationwide, interoperable health information exchange. Review the USCDI Fact Sheet to learn more. Adams Announces MOMS Act and Maternal CARE Act to Conclude Black Maternal Health Week The MOMS Act would expand the Alliance for Innovation on Maternal Health (AIM) program, which develops standardized maternal safety best practices to prevent maternal mortality and morbidity and would establish a new grant program to provide states and hospitals with the resources and training needed to implement the best practices to prevent maternal death and complications before, during, and after childbirth. AMERICA IS FAILING ITS BLACK MOTHERS from the Harvard Chan School Business Model Innovation for Inclusive Health Care Delivery at the Bottom of the Pyramid This article investigates business models innovation for delivering health care at the base of the pyramid (BoP). The examination of six health care organizational cases suggests that co-creation of patient needs, community engagement, continuous involvement of customers, innovative medical technology, focus on human resources for health, strategic partnerships, economies of scale, and cross-subsidization are business model innovation strategies that enable inclusive health care delivery. Based on these findings, we propose a four-dimensional framework. A process of value discovery, leading BoP patients and communities to recognize a health need and seek for an acceptable treatment, precedes the identification of a successful value proposit...

Mighty Casey Quinlan's #MetsParty returns from the hospital. Worth it. Took control. Alive, cooking, eating, working. Piss and vinegar. Pasta. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem.. 1 Enough control to call 911 on me 02:23. 1 Mobility, pain, the Outer Banks, and Rockettes 06:17. 2 Stay put, avoid the stairs, recognize privilege 08:58. 3 Spirits, sorting out home health 11:40. 4 Alive, eating, cooking 14:05. 4 Working for a Yankee dollar 18:07. 6 Receiving end of hospitalists. Coordination of care still on me. 20:37. 6 Connection 23:39. 7 Reflection 25:27  8 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn via email DM on Instagram or Twitter to @healthhats Credits Background music (CoCo My My by Estansislao Servia) performed by Lechuga Fresca  with Josh Rosenstock, Karen Welling, Andrea Neptune, Betsy Cowan, Cornell Coley, Jon Fraser, Ryan Vastos, Stephen DeBenedictis, and Danny van Leeuwen Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Web/social media coach, Kayla Nelson Inspired by You Know Who You Are Sponsored by Abridge Links https://mightycasey.com/healthcare-is-hilarious/ How to Deal with Difficult Patients: A Message from Casey Quinlan, Patient Advocate Related podcasts and blogs https://health-hats.com/pod127/ https://health-hats.com/medication-list/ https://health-hats.com/reading-the-room-and-yourself/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem Our friend and inspiration, Casey Quinlan, returns from five days in the hospital. Casey authors and produces a podcast, Healthcare Hilarious.  I sponsor Healthcare is Hilarious. Since this bit of fun with Stage IV metastatic cancer, Casey lacks the energy to maintain her weekly delivery schedule, so I'm recording our exchanges. Casey can use them to keep her fans and followers up to date. Listen to the raw, unedited version #MetsParty goes to the hospital here. Why do I cross-post this dialogue? I never record conversations with people in the throes of their health challenges on this podcast. Why not take the opportunity when it appears? Who has that kind of energy when they're down?  Remember those 2Cs I've spoken about in the past? The 3Ts and 2Cs of best health (trust, time, talk, control, and connection). When you feel like crap, control and connection take a hit.  By their very nature, hospitals and feeling like crap eat control and con...

More of the Tomoff 20-year odyssey with 5 rounds of cancer. Open your heart to community. Bottle empathy. Embrace post-traumatic growth. Succession planning. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem (Preface) 1 Help the helpers help. 02:05. 1 Open heart, share wisdom, transform, bottle it 04:51. 2 Control, empathy, connection, movement 08:25. 3 Open doors, close doors with post-traumatic stress 12:54. 4 Open and close doors with post-traumatic growth, too 15:23. 4 Succession planning 20:12. 6 Honor the village 24:37. 7 Last words with Olivia 27:14. 7 The drama of family dynamics - intimate in a vulnerable state 28:34. 8 Good news, the unexpected 30:51. 8 Last words from Ryan 32:43. 9 Reflection 34:01. 9 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Web/social media coach, Kayla Nelson Inspired by and grateful to David Bourne, Jennifer Keeney, Stephanie Oden, Lisa van Leeuwen, Kathy Cocks Sponsored by Abridge Links The Focused Fight by Terri Tomoff Leukemia Lymphoma Society The Difference Collaborative Knowledge for Caregivers Podcast by Kathy Cocks Related podcasts and blogs https://health-hats.com/pod130/ https://health-hats.com/help_the_helpers_in_crisis/ https://health-hats.com/demntia_covid19/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem (Preface) Welcome back to the Tomoff Family, Olivia, Bill, Terri, and Ryan.  Terri Tomoff wrote a book, The Focused Fight, a story about hope and survival of one ordinary family and their community of support to bring a two-year-old through five cancers over twenty years (three times leukemia and twice adult tongue cancer).  In episode 1, Honor Supporting Cast, the Stars of Disabling Conditions, we met the Tomoff's and talked about 'We're different, That's normal'; spiritual health; pillow, pills, poop, and piss; and freaking out. All inward-looking. Inward into the family. Today we'll shift our gaze out to the community and into the future. As care partner to several family members' end-of-life-journeys, I felt the awkwardness of the loving, the concerned, and the generous. How can we help? What's acceptable language? Am I intruding? We'll hear thoughts from the Tomoffs about living through difficulties and bursting to share what worked and didn't wor...

Terri Tomoff wrote The Focused Fight, bringing a 2-year-old through 5 cancers over 20 years. We hear from whole family. Each star & supports. Help the Helpers. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem (Preface) 1 Introducing Family Tomoff 02:24. 1 We're different. That's normal. 06:46. 2 Spiritual, mental, physical 13:40. 4 Pillow, pills, poop, and piss 19:57. 5 Freaking out. I've had enough. 23:32. 6 A generation! The experience over time. 27:37. 7 Reflection 35:09. 9 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Web/social media coach, Kayla Nelson Inspired by and grateful to David Bourne, Karena De Souza, Natalie M. Esparza, Curtis Cates, Geri Lynn Baumblatt, Mary Anne Sterling, Pete Wendel Sponsored by Abridge Links The Focused Fight by Terri Tomoff Leukemia Lymphoma Society The Hansel and Gretel Code, podcast from Curtis Cates Spectacle by Natalie Esparza  Tilt the Future from Karena deSouza The Difference Collaborative Related podcasts and blogs https://health-hats.com/pod114/ https://health-hats.com/help-the-helpers-care-for-healthcare-workers-now/ https://health-hats.com/difference_collaborative/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem (Preface) Health Hats: My first clinical rotation in nursing school in 1973 traumatically seeded my approach to health service. Assigned to a couple committed to natural childbirth with the father in the delivery room, unusual at that time and place, the mother had a normal pregnancy. But she delivered a squalling baby with its chord wrapped tightly around its waist, normal from waist up and withered from the waist down. Dad and green student (me) pushed to the wall in a daze with Mom and babe stars of the show, the centers of attention. Filling a vacuum, I bonded with the distraught Dad.  He was supporting cast in that setting, nonetheless a patient in need. Since I recorded these conversations with Olivia, Ryan, Bill, and Terri Tomoff, I've realized that I pay particular attention to the supporting cast when I watch a movie or TV show.  Last night when I couldn't sleep, I watched, Law and Order Criminal Intent.  Vincent D'Onofrio needs Kathryn Erbe. Steven Colbert needs Jon Baptiste. Hansel and Gretel need the witch. We all need supporting cast.

Taking a week off while I shift from one web host to another. Plus, I need a break. 129 episodes in 132 weeks (2 1/2 years). Returning next week in full glory. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Web/social media coach, Kayla Nelson Sponsored by Abridge Links Related podcasts and blogs https://health-hats.com/unintended_consequences/ https://health-hats.com/a-gift-that-keeps-giving/ https://health-hats.com/the-silence-between-the-notes/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show I'm taking a week off. Due to a cranky web host with four website and email outages in 3 weeks, I'm transferring from BlueHost to GoDaddy.  I need to give the transfer another week to stabilize. Should be seamless to you, thanks to my web/social media coach, Kayla Nelson, guiding me through this fraught process. Plus, I can use the break from the weekly routine - 129 episodes in 132 weeks (2 ½ years)!!   Love and prayers to Casey Quinlan and Bob Doherty for best health and peace. Grateful to my sponsor, Abridge, and you all for your ongoing support. Returning next week in full glory. Happy Father's Day. I bought a blue raffia (African palm) crocheted Helen Kaminsky cap at Salmagundi's in Jamaica Plain to celebrate life! Onward.

Taking a week off while I shift from one web host to another. Plus, I need a break. 129 episodes in 132 weeks (2 1/2 years). Returning next week in full glory. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Web/social media coach, Kayla Nelson Sponsored by Abridge Links Related podcasts and blogs https://health-hats.com/unintended_consequences/ https://health-hats.com/a-gift-that-keeps-giving/ https://health-hats.com/the-silence-between-the-notes/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show I'm taking a week off. Due to a cranky web host with four website and email outages in 3 weeks, I'm transferring from BlueHost to GoDaddy.  I need to give the transfer another week to stabilize. Should be seamless to you, thanks to my web/social media coach, Kayla Nelson, guiding me through this fraught process. Plus, I can use the break from the weekly routine - 129 episodes in 132 weeks (2 ½ years)!!   Love and prayers to Casey Quinlan and Bob Doherty for best health and peace. Grateful to my sponsor, Abridge, and you all for your ongoing support. Returning next week in full glory. Happy Father's Day. I bought a blue raffia (African palm) crocheted Helen Kaminsky cap at Salmagundi's in Jamaica Plain to celebrate life! Onward.

Nurture spirit for best health. Death, dying, grief, trauma weaken and ++ connections, music, art, mindfulness, gratitude strengthen the spirit. A mystery indeed. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem 1 Wonder and mystery 02:09 1 Conscious of spirit 03:25 1 My soul, the internal fire of spirit 06:30 2 Reflection 07:50 2 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Web/social media coach, Kayla Nelson Inspired by and grateful to: Luc Pelletier, Amy Price, Bob Doherty, Fred Gutierrez, Kathleen Owens, Jason van Leeuwen, Gabriel Nathan, Sue and Jason Donnelly, Steve Heatherington Sponsored by Abridge Links Related podcasts and blogs https://www.health-hats.com/best-health-at-the-end-of-life-a-celebration-hhp001/ https://www.health-hats.com/gratitude-podcasting-best-health/ https://www.health-hats.com/gratitude-in-loss-together/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://www.health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem We visited my sister this week, traveling between cool, sunny San Diego and very hot Indio, CA. Not the same here since my mom died in 2014. My sister, Jessica, and I reminisced. What did Ruth, my mom, believe happened after death? She thought her body died and her spirit lived. She hoped her spirit would come back in a Monarch butterfly. My mom, born Jewish, rejected organized religion after surviving the Holocaust. My other sister thinks our mom was atheist. An atheist is someone who does not believe in the existence of a god or any gods. Our parents wanted us to have a religious education and brought us up Unitarian. In later years Ruth described herself as a Jew-nitarian – a cross between Jewish and Unitarian. Growing up Unitarian, I appreciated the wonder of the different ways people feel spiritual, whether or not they recognize a God. Wonder and mystery I don't believe in a personified God. She doesn't want, prefer, or demand anything. They are a power I can't conceive of, can't really know. I find comfort in the mystery of the unknown. I'm not religious, but I feel spiritual. If God is the name for spirit, then I believe in God. If God rules and judges us, I don't believe in God. I've never felt that I had to judge someone else's belief. My intuition finds deep suspicion of anyone or any religion that uses their religion to divide,

Nurture spirit for best health. Death, dying, grief, trauma weaken and ++ connections, music, art, mindfulness, gratitude strengthen the spirit. A mystery indeed. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem 1 Wonder and mystery 02:09 1 Conscious of spirit 03:25 1 My soul, the internal fire of spirit 06:30 2 Reflection 07:50 2 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Web/social media coach, Kayla Nelson Inspired by and grateful to: Luc Pelletier, Amy Price, Bob Doherty, Fred Gutierrez, Kathleen Owens, Jason van Leeuwen, Gabriel Nathan, Sue and Jason Donnelly, Steve Heatherington Sponsored by Abridge Links Related podcasts and blogs https://health-hats.com/best-health-at-the-end-of-life-a-celebration-hhp001/ https://health-hats.com/gratitude-podcasting-best-health/ https://health-hats.com/gratitude-in-loss-together/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem We visited my sister this week, traveling between cool, sunny San Diego and very hot Indio, CA. Not the same here since my mom died in 2014. My sister, Jessica, and I reminisced. What did Ruth, my mom, believe happened after death? She thought her body died and her spirit lived. She hoped her spirit would come back in a Monarch butterfly. My mom, born Jewish, rejected organized religion after surviving the Holocaust. My other sister thinks our mom was atheist. An atheist is someone who does not believe in the existence of a god or any gods. Our parents wanted us to have a religious education and brought us up Unitarian. In later years Ruth described herself as a Jew-nitarian – a cross between Jewish and Unitarian. Growing up Unitarian, I appreciated the wonder of the different ways people feel spiritual, whether or not they recognize a God. Wonder and mystery I don't believe in a personified God. She doesn't want, prefer, or demand anything. They are a power I can't conceive of, can't really know. I find comfort in the mystery of the unknown. I'm not religious, but I feel spiritual. If God is the name for spirit, then I believe in God. If God rules and judges us, I don't believe in God. I've never felt that I had to judge someone else's belief. My intuition finds deep suspicion of anyone or any religion that uses their religion to divide,

Still hilarious traveling down the tube of metastatic cancer? Maybe bemused, bewildered, be tired. Definitely not dead yet. Mighty Casey keeps us up-to-date. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem 1 Greetings and salutations from the confines of the pipe 02:07 2 Mobility, a burr in her saddle 05:22 2 Immobility and living alone mix like thinking and drinking 07:33 3 Bemused, bewildered, be fuddled, be bored, be tired 09:49 4 Be cooked, be home 12:18 5 Smoke signals welcome 15:03 5 Self-advocacy towards…? 17:27 6 Back to drinking 19:24 7 Waiting for palliative care 20:57 7 Not alone, a big deal. 23:36 8 Not dead 24:38 8 Present traumatic stress disorder (PTSD) 25:33 8 Let's do this again 26:38 9 Reflection 28:21 9 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Web/social media coach, Kayla Nelson Inspired by You Know Who You Are Sponsored by Abridge Links https://mightycasey.com/healthcare-is-hilarious/ How to Deal with Difficult Patients: A Message from Casey Quinlan, Patient Advocate Related podcasts and blogs https://www.health-hats.com/you-say-you-want-a-revolution/ https://www.health-hats.com/temporarily-able-bodied-people-were-in-this-together/ https://www.health-hats.com/you-2-0-branding/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://www.health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem Let me introduce my dear friend, Casey Quinlan. Last week, when I said that I'm a lousy revolutionary, I thought about Casey, a much better revolutionary. Casey uses the handle, Mighty Casey, and publishes the podcast, Healthcare is Hilarious. I sponsor Casey's podcast through Patreon. While our approach to healthcare activism varies considerably, Casey is one of a handful of activists I consult when I find myself in a hole I can't get out of. She's a clear thinking, irreverent, expert in change management. Most people I chat with on my podcast have the most serious chapters in their health adventure behind them. Not so Casey. She's in the eye of a metastatic storm and can't find the energy to keep her storm chasers in the loop. I offered to record a conversation she could fling into her podcast. She agreed to let me share it with you here. Doing something with two birds and a stone. To listen to the episode in the raw,

Still hilarious traveling down the tube of metastatic cancer? Maybe bemused, bewildered, be tired. Definitely not dead yet. Mighty Casey keeps us up-to-date. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem 1 Greetings and salutations from the confines of the pipe 02:07 2 Mobility, a burr in her saddle 05:22 2 Immobility and living alone mix like thinking and drinking 07:33 3 Bemused, bewildered, be fuddled, be bored, be tired 09:49 4 Be cooked, be home 12:18 5 Smoke signals welcome 15:03 5 Self-advocacy towards…? 17:27 6 Back to drinking 19:24 7 Waiting for palliative care 20:57 7 Not alone, a big deal. 23:36 8 Not dead 24:38 8 Present traumatic stress disorder (PTSD) 25:33 8 Let's do this again 26:38 9 Reflection 28:21 9 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Web/social media coach, Kayla Nelson Inspired by You Know Who You Are Sponsored by Abridge Links https://mightycasey.com/healthcare-is-hilarious/ How to Deal with Difficult Patients: A Message from Casey Quinlan, Patient Advocate Related podcasts and blogs https://health-hats.com/you-say-you-want-a-revolution/ https://health-hats.com/temporarily-able-bodied-people-were-in-this-together/ https://health-hats.com/you-2-0-branding/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem Let me introduce my dear friend, Casey Quinlan. Last week, when I said that I'm a lousy revolutionary, I thought about Casey, a much better revolutionary. Casey uses the handle, Mighty Casey, and publishes the podcast, Healthcare is Hilarious. I sponsor Casey's podcast through Patreon. While our approach to healthcare activism varies considerably, Casey is one of a handful of activists I consult when I find myself in a hole I can't get out of. She's a clear thinking, irreverent, expert in change management. Most people I chat with on my podcast have the most serious chapters in their health adventure behind them. Not so Casey. She's in the eye of a metastatic storm and can't find the energy to keep her storm chasers in the loop. I offered to record a conversation she could fling into her podcast. She agreed to let me share it with you here. Doing something with two birds and a stone. To listen to the episode in the raw,

How can co-production help get research findings into practice and life? Consider researchers' and public's capacity, willingness, and opportunity to co-produce. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem.. 1 Little did I know. Growing into co-production. 02:01. 1 Experimenting for change in research 05:17. 2 Co-production – a power shift 06:15. 2 Co-production – from here to where? 08:00. 3 Researcher’s capacity, willingness, and opportunity to participate 08:45. 3 Public’s capacity, willingness, and opportunity to participate. 10:31. 3 Why bother? It’s hard. 12:26. 4 Now what? 15:46. 5 Reflection 18:13. 5 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Web/social media coach, Kayla Nelson Inspired by Karen Fortuna, Gwen Darien, James Harrison, Michelle Lenox, Crispin Goyta, Beverly Rogers, Thomas Scheid, Libby Hoy, Luc Pelletier, Laurie Wasserstein, Dorothy Cucinelli Sponsored by Abridge Links Co-production of the quality of patient-centered outcomes research partnerships instrument for people with mental health conditions  Fortuna, Karen L.; Myers, Amanda; Brooks, Jessica; Collins-Pisano, Caroline; Marceau, Skyla; Pratt, Sarah; Lyons, Kathy; Walker, Robert; Thompson, Shavon; Greene, Kaycie; Pringle, Willie; and Carter, Katina (2021) "Co-production of the quality of patient-centered outcomes research partnerships instrument for people with mental health conditions," Patient Experience Journal: Vol. 8 : Iss. 1 , Article 17. DOI: 10.35680/2372-0247.1533 NIHR resource for public involvement - Guidance on co-producing a research project Published April 2021 Co-production of knowledge: the future. BMJ 2021; 372 doi: https://doi.org/10.1136/bmj.n434 (Published 16 February 2021) Patient Engagement In Research: Early Findings From The Patient-Centered Outcomes Research Institute Laura P. Forsythe, Kristin L. Carman, Victoria Szydlowski, Lauren Fayish, Laurie Davidson, David H. Hickam, Courtney Hall, Geeta Bhat, Denese Neu, Lisa Stewart, Maggie Jalowsky, Naomi Aronson, and Chinenye Ursla Anyanwu Health Affairs 2019 38:3, 359-367 Related podcasts and blogs https://www.health-hats.com/pod125/   https://www.health-hats.com/covid-19-people-living-safely/ https://www.health-hats.com/everyone-included-research/   About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://www.health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs...

How can co-production help get research findings into practice and life? Consider researchers' and public's capacity, willingness, and opportunity to co-produce. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem.. 1 Little did I know. Growing into co-production. 02:01. 1 Experimenting for change in research 05:17. 2 Co-production – a power shift 06:15. 2 Co-production – from here to where? 08:00. 3 Researcher's capacity, willingness, and opportunity to participate 08:45. 3 Public's capacity, willingness, and opportunity to participate. 10:31. 3 Why bother? It's hard. 12:26. 4 Now what? 15:46. 5 Reflection 18:13. 5 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Web/social media coach, Kayla Nelson Inspired by Karen Fortuna, Gwen Darien, James Harrison, Michelle Lenox, Crispin Goyta, Beverly Rogers, Thomas Scheid, Libby Hoy, Luc Pelletier, Laurie Wasserstein, Dorothy Cucinelli Sponsored by Abridge Links Co-production of the quality of patient-centered outcomes research partnerships instrument for people with mental health conditions  Fortuna, Karen L.; Myers, Amanda; Brooks, Jessica; Collins-Pisano, Caroline; Marceau, Skyla; Pratt, Sarah; Lyons, Kathy; Walker, Robert; Thompson, Shavon; Greene, Kaycie; Pringle, Willie; and Carter, Katina (2021) "Co-production of the quality of patient-centered outcomes research partnerships instrument for people with mental health conditions," Patient Experience Journal: Vol. 8 : Iss. 1 , Article 17. DOI: 10.35680/2372-0247.1533 NIHR resource for public involvement - Guidance on co-producing a research project Published April 2021 Co-production of knowledge: the future. BMJ 2021; 372 doi: https://doi.org/10.1136/bmj.n434 (Published 16 February 2021) Patient Engagement In Research: Early Findings From The Patient-Centered Outcomes Research Institute Laura P. Forsythe, Kristin L. Carman, Victoria Szydlowski, Lauren Fayish, Laurie Davidson, David H. Hickam, Courtney Hall, Geeta Bhat, Denese Neu, Lisa Stewart, Maggie Jalowsky, Naomi Aronson, and Chinenye Ursla Anyanwu Health Affairs 2019 38:3, 359-367 Related podcasts and blogs https://health-hats.com/pod125/   https://health-hats.com/covid-19-people-living-safely/ https://health-hats.com/everyone-included-research/   About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows...

Taking Person-First Safe Living in a Pandemic on the road with Health Communication students at The College of NJ leading to Care Against COVID on Instagram Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem.. 1 Person-First Safe Living goes on the road 02:14. 2 Partnering with students 03:49. 2 Expectations 05:23. 3 Begin the Beguine 06:35. 3 Worry about family. Noticing depression. 07:26. 3 Stressed. Stay sane. 10:18. 4 Am I so different? 11:04. 4 Food insecurity 12:15. 5 Logo, Labels 13:59. 5 Convener, Content-Generator, Tracker – Working Together 15:43. 5 Choosing Instagram 17:40. 6 Professional polish on a dime or less 18:55. 7 Questions people ask 22:11. 7 Personal Growth? 23:11. 8 Data – Taking a pulse 25:28. 8 Inflection point – When to post 27:50. 9 Teamwork Ain't Easy 29:08. 10 Learning new skills 31:31. 11 Lessons learned from outside the bubble 33:43. 11 Reflection 39:17  12 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Web/social media coach, Kayla Nelson Inspired by and grateful to Michael Mittelman, Kelly Reeves, Natalka Slabyj, Sameemuddin Syed, Maria Michaels, Julia Skapick, Sharon Hibay, Cynthia LeRouge, June Levy, Victoria Lyon, Joy Mayer, Ellen Schultz, Judy Thomas, Mindy Hangsleben, Edwin Lomotan, Lacy Fabian, Kristin Delwo, Brian Alper, Kayla Nelson Sponsored by Abridge Links The students' campaign https://www.instagram.com/careagainstcovid/ TCNJ Twitter: @TCNJ_PubHealth About the Health Communication track at TCNJ  Communication Department Instagram https://www.instagram.com/tcnjcommstudies/ Related podcasts and blogs https://health-hats.com/covid-19-people-living-safely/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem During my career, I served twice in the C-Suite (C means Chief or senior leader in an organization). At first, a heady experience – Jeesh, I'm a real boss! When the honeymoon was over, I noticed that I was mostly talking to the same people - other people in the C-suite, by its nature, a small group. We all knew how the others thought. We understood the pecking order.  There's always a pecking order not necessarily related to titles. I craved bringing in new voices, shake things up. Perhaps we would make different decisions listening to other experti...

Taking Person-First Safe Living in a Pandemic on the road with Health Communication students at The College of NJ leading to Care Against COVID on Instagram Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem.. 1 Person-First Safe Living goes on the road 02:14. 2 Partnering with students 03:49. 2 Expectations 05:23. 3 Begin the Beguine 06:35. 3 Worry about family. Noticing depression. 07:26. 3 Stressed. Stay sane. 10:18. 4 Am I so different? 11:04. 4 Food insecurity 12:15. 5 Logo, Labels 13:59. 5 Convener, Content-Generator, Tracker – Working Together 15:43. 5 Choosing Instagram 17:40. 6 Professional polish on a dime or less 18:55. 7 Questions people ask 22:11. 7 Personal Growth? 23:11. 8 Data – Taking a pulse 25:28. 8 Inflection point – When to post 27:50. 9 Teamwork Ain’t Easy 29:08. 10 Learning new skills 31:31. 11 Lessons learned from outside the bubble 33:43. 11 Reflection 39:17  12 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Web/social media coach, Kayla Nelson Inspired by and grateful to Michael Mittelman, Kelly Reeves, Natalka Slabyj, Sameemuddin Syed, Maria Michaels, Julia Skapick, Sharon Hibay, Cynthia LeRouge, June Levy, Victoria Lyon, Joy Mayer, Ellen Schultz, Judy Thomas, Mindy Hangsleben, Edwin Lomotan, Lacy Fabian, Kristin Delwo, Brian Alper, Kayla Nelson Sponsored by Abridge Links The students' campaign https://www.instagram.com/careagainstcovid/ TCNJ Twitter: @TCNJ_PubHealth About the Health Communication track at TCNJ  Communication Department Instagram https://www.instagram.com/tcnjcommstudies/ Related podcasts and blogs https://www.health-hats.com/covid-19-people-living-safely/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://www.health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem During my career, I served twice in the C-Suite (C means Chief or senior leader in an organization). At first, a heady experience – Jeesh, I’m a real boss! When the honeymoon was over, I noticed that I was mostly talking to the same people - other people in the C-suite, by its nature, a small group. We all knew how the others thought. We understood the pecking order.  There’s always a pecking order not necessarily related to titles. I craved bringing in new voices, shake things up. Perhaps we would make different decisions listening to other...

Celebrating generational milestones. Reaching life goals. Surviving and thriving with superpowers. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Celebrations 13, 20, 45. 1 Reaching goals in life. All gravy from here. 01:52. 1 Superpowers. Poet. 03:57. 2 Reflection. Accepting what is. 05:14. 2 Podcast premier of Mou’s Blues 05:53  2 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Web/social media coach, Kayla Nelson Sponsored by Abridge Links Contemporary Improvisation including Mou's Blues by Joey van Leeuwen Related podcasts and blogs https://www.health-hats.com/superpower-accepting-what-is-1-99/ https://www.health-hats.com/salt-in-my-soul-an-unfinished-life/ https://www.health-hats.com/whats-your-superpower/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://www.health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Celebrations 13, 20, 45 Much to celebrate this week. My oldest grandson turns 13, and his mom and dad celebrate their 20th wedding anniversary. I officiated at the wedding in 2001. Mike, the couple’s brother, our son, and I played the Beatles tune When I’m 64, for the couple’s first dance. Mike would have been 45 this week - a different kind of celebration. Reaching goals in life. All gravy from here. My goals in life included being a good man to a good woman and raising children who grew to love strong partners while being solid parents. I’m thankful to have reached these goals. It’s all gravy from here. Reflecting, I’m overwhelmed with pride in and gratitude for our family and sadness that Mike didn’t experience these past twenty years. He famously quipped that he wasn’t born with a tattoo on his butt telling him how long he would live. Mike was in a loving relationship with a strong woman before he died. I have no doubt he would have been an inspiring father.  My sweet grandson draws from the best of his incredible parents, readily shows his love of his grandparents, and shares easily and wisely about his challenges living the life of a 13-year-old during a pandemic. Life’s a trip and a half—no predicting anything. Now a word about our sponsor, ABRIDGE. Use Abridge during your visit with your primary care, specialist, or any clinician. Put the app on the table or desk, push the big pink button, and record the conversation. Read the transcript or listen to clips when you get home...

Celebrating generational milestones. Reaching life goals. Surviving and thriving with superpowers. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Celebrations 13, 20, 45. 1 Reaching goals in life. All gravy from here. 01:52. 1 Superpowers. Poet. 03:57. 2 Reflection. Accepting what is. 05:14. 2 Podcast premier of Mou's Blues 05:53  2 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Web/social media coach, Kayla Nelson Sponsored by Abridge Links Contemporary Improvisation including Mou's Blues by Joey van Leeuwen Related podcasts and blogs https://health-hats.com/superpower-accepting-what-is-1-99/ https://health-hats.com/salt-in-my-soul-an-unfinished-life/ https://health-hats.com/whats-your-superpower/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Celebrations 13, 20, 45 Much to celebrate this week. My oldest grandson turns 13, and his mom and dad celebrate their 20th wedding anniversary. I officiated at the wedding in 2001. Mike, the couple's brother, our son, and I played the Beatles tune When I'm 64, for the couple's first dance. Mike would have been 45 this week - a different kind of celebration. Reaching goals in life. All gravy from here. My goals in life included being a good man to a good woman and raising children who grew to love strong partners while being solid parents. I'm thankful to have reached these goals. It's all gravy from here. Reflecting, I'm overwhelmed with pride in and gratitude for our family and sadness that Mike didn't experience these past twenty years. He famously quipped that he wasn't born with a tattoo on his butt telling him how long he would live. Mike was in a loving relationship with a strong woman before he died. I have no doubt he would have been an inspiring father.  My sweet grandson draws from the best of his incredible parents, readily shows his love of his grandparents, and shares easily and wisely about his challenges living the life of a 13-year-old during a pandemic. Life's a trip and a half—no predicting anything. Now a word about our sponsor, ABRIDGE. Use Abridge during your visit with your primary care, specialist, or any clinician. Put the app on the table or desk, push the big pink button, and record the conversation. Read the transcript or listen to clips when you get home.

Another member of my health team, Endre Papp, massage therapist, Making the best use of an engineer and designer’s approach to bodywork. Good for what ails me. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem.. 1 Introducing Endre Papp 03:09. 1 Massage therapist engineer 05:05. 2 Elevator speech that wasn’t 09:20. 3 Multiple Sclerosis changes the signals 11:25. 3 Recruiting a massage therapist that fits 15:17. 4 Make the most of your therapist 19:09. 5 Integrative massage therapy 24:21. 6 After the session 26:53. 7 Reflection 29:40  8 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Web/social media coach, Kayla Nelson Photo by Kira auf der Heide on Unsplash Inspiration from Laura Zucker, Valerie Smith, Aparna Raghuram, Darlene Harrier, Keith Puri, Dafna Gold Melchior, Amanda Blodgett, Cherie Binns Sponsored by Abridge Links Endre Papp on LinkedIn Related podcasts and blogs https://www.health-hats.com/family-practice-the-cornerstone-of-my-team/ https://www.health-hats.com/my-optometrist-saved-my-life/ https://www.health-hats.com/physical-therapy-needed-when-needed/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://www.health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem Sustainable best health depends on building a healthcare team responsive to your leadership. In early 2020 I began a series about people on my health team – my primary care doc, optometrist, physical therapist, acupuncturist, chiropractor, and massage therapist.  I wouldn’t function as well as I do without these skilled, supportive, and warm masters in their fields. While cleaning my virtual file cabinet, I found an unpublished interview with my massage therapist, Endre Papp. I thought I had published it. Listening to the sound file, luckily that conversation continues to reflect the value of this crucial relationship. Multiple Sclerosis causes me to feel out of balance almost all the time. Yes, my balance sucks, but that’s not what I mean here. MS causes damage to nerve pathways in the brain, spinal cord, or optic nerves. I’m blessed with some damage in all three, causing muscular weakness, cramping, fatigue, and chronic pain plus neuropathy – numbness, tingling, and other psychedelic sensations. I never feel at rest. Rather I’m constantly adjusting and adapting. Plus, I spend much of my day sitting at a computer and playing my big horn, the baritone saxophone. As you’ll hear in our conversation,

Another member of my health team, Endre Papp, massage therapist, Making the best use of an engineer and designer's approach to bodywork. Good for what ails me. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem.. 1 Introducing Endre Papp 03:09. 1 Massage therapist engineer 05:05. 2 Elevator speech that wasn't 09:20. 3 Multiple Sclerosis changes the signals 11:25. 3 Recruiting a massage therapist that fits 15:17. 4 Make the most of your therapist 19:09. 5 Integrative massage therapy 24:21. 6 After the session 26:53. 7 Reflection 29:40  8 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Web/social media coach, Kayla Nelson Photo by Kira auf der Heide on Unsplash Inspiration from Laura Zucker, Valerie Smith, Aparna Raghuram, Darlene Harrier, Keith Puri, Dafna Gold Melchior, Amanda Blodgett, Cherie Binns Sponsored by Abridge Links Endre Papp on LinkedIn Related podcasts and blogs https://health-hats.com/family-practice-the-cornerstone-of-my-team/ https://health-hats.com/my-optometrist-saved-my-life/ https://health-hats.com/physical-therapy-needed-when-needed/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem Sustainable best health depends on building a healthcare team responsive to your leadership. In early 2020 I began a series about people on my health team – my primary care doc, optometrist, physical therapist, acupuncturist, chiropractor, and massage therapist.  I wouldn't function as well as I do without these skilled, supportive, and warm masters in their fields. While cleaning my virtual file cabinet, I found an unpublished interview with my massage therapist, Endre Papp. I thought I had published it. Listening to the sound file, luckily that conversation continues to reflect the value of this crucial relationship. Multiple Sclerosis causes me to feel out of balance almost all the time. Yes, my balance sucks, but that's not what I mean here. MS causes damage to nerve pathways in the brain, spinal cord, or optic nerves. I'm blessed with some damage in all three, causing muscular weakness, cramping, fatigue, and chronic pain plus neuropathy – numbness, tingling, and other psychedelic sensations. I never feel at rest. Rather I'm constantly adjusting and adapting. Plus, I spend much of my day sitting at a computer and playing my big horn, the baritone saxophone.

The powerful are not homogenous. The person-first approach (meet people where they are) can help us better strategize and advocate for partnership and shared decision-making in health choices, research, practice, policy, or equity. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem.. 1 The power of person-first 02:13. 1 The powerful are not homogenous 03:30. 1 Who are we advocates and activists? 06:28. 2 Reflection 07:23. 2 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Web/social media coach, Kayla Nelson Inspiration from Greg Merritt, Neely Williams, Nadine Zemon, Karen Fortuna, Fred Gutierrez, Harvey Hellerstein, James Harrison, Brendaly Rodriguez, Russell Bennett, Amy Price Photo by Natasha Arefyeva on Unsplash Sponsored by Abridge Links Fred Gutierrez' Homeowners Institute podcast Related podcasts and blogs https://www.health-hats.com/pod108/ https://www.health-hats.com/everyone-included-research/ https://www.health-hats.com/patient-family-advisors-back-2-basics/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://www.health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem Greetings, readers and listeners. Have I expressed my gratitude out loud to you recently? I’m grateful for your participation in my musings and curiosity while learning on the journey toward best health. I’m grateful to my guests who allow us some moments of intimacy with them to peek into their passion and expertise. I love that I can roam where the spirit moves me, and you still return. Thank you. From my heart, thank you. Each interview episode takes from 12-20 hours to produce – a labor of love. Recently, I’ve alternated interview episodes with much shorter on-mic episodes – on mic means just me.  These take six to ten hours to produce and leaves me more time to play music. I’m continually surprised as people reach out to share a connection they felt during an interview or on mic episode. Maybe not surprised as much as fueled. Fuel for keeping on. Again, my gratitude. The power of person-first I’m a person who needs a vision – a picture of an ideal state – like best health.  Then I can head to that destination. You’ve heard me rant about goal setting - the destination for best health. You’ve heard me go on about changing the power dynamic in the relationship between patients and caregivers and their clinician par...

The powerful are not homogenous. The person-first approach (meet people where they are) can help us better strategize and advocate for partnership and shared decision-making in health choices, research, practice, policy, or equity. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem.. 1 The power of person-first 02:13. 1 The powerful are not homogenous 03:30. 1 Who are we advocates and activists? 06:28. 2 Reflection 07:23. 2 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Web/social media coach, Kayla Nelson Inspiration from Greg Merritt, Neely Williams, Nadine Zemon, Karen Fortuna, Fred Gutierrez, Harvey Hellerstein, James Harrison, Brendaly Rodriguez, Russell Bennett, Amy Price Photo by Natasha Arefyeva on Unsplash Sponsored by Abridge Links Fred Gutierrez' Homeowners Institute podcast Related podcasts and blogs https://health-hats.com/pod108/ https://health-hats.com/everyone-included-research/ https://health-hats.com/patient-family-advisors-back-2-basics/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem Greetings, readers and listeners. Have I expressed my gratitude out loud to you recently? I'm grateful for your participation in my musings and curiosity while learning on the journey toward best health. I'm grateful to my guests who allow us some moments of intimacy with them to peek into their passion and expertise. I love that I can roam where the spirit moves me, and you still return. Thank you. From my heart, thank you. Each interview episode takes from 12-20 hours to produce – a labor of love. Recently, I've alternated interview episodes with much shorter on-mic episodes – on mic means just me.  These take six to ten hours to produce and leaves me more time to play music. I'm continually surprised as people reach out to share a connection they felt during an interview or on mic episode. Maybe not surprised as much as fueled. Fuel for keeping on. Again, my gratitude. The power of person-first I'm a person who needs a vision – a picture of an ideal state – like best health.  Then I can head to that destination. You've heard me rant about goal setting - the destination for best health. You've heard me go on about changing the power dynamic in the relationship between patients and caregivers and their clinician partners; between pat...

Trust in journalism. Still complicated. Do we value connection over logic? Are we persuadable? What is the mix of facts, context, opinions? Learn from Joy Mayer Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem.. 1 Introducing Joy Mayer and Trusting News 01:46. 1 Trust is complicated (where have we heard that before?) 06:18. 3 Affective versus cognitive trust – connection or logic 09:31. 3 Persuadable but overwhelmed 11:03. 4 Engaging transparency 11:54. 4 Self-aware before convincing 14:08. 5 Opinion without context. Facts with context. 15:48. 5 Earning trust even if wrong 19:58. 7 Rating trust 21:23. 7 Transparently confusing 26:38. 8 Person first – meeting us where we are. Where are we? 27:59. 9 Falling off the cliff of trust 34:10. 11 Trust as digestible 36:28. 11 Reflection 38:36  12 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Web/social media coach, Kayla Nelson Inspiration from Josh Richardson, Jodyn Platt, Laura Marcial, Aaron Carroll, Barry Blumenfeld, Lynne Becker Sponsored by Abridge Links From Joy Mayer A UF project I'm loosely affiliated with that did research into how to make vaccine communication effective: https://covid19vaccinescommunicationprinciples.org/ A deck my team updates periodically, collecting research on trust in news: http://bit.ly/trustingnewsresearch Advice I wrote for an industry publication about how to consume news responsibly: https://www.poynter.org/ethics-trust/2020/how-to-consume-news-during-the-coronavirus-pandemic/ Healthcare Triage- Aaron Carroll's YouTube channel Related podcasts and blogs https://health-hats.com/trust-willing-to-be-vulnerable-worth-the-investment/ https://health-hats.com/pod113/ https://health-hats.com/pod106/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem I live in a bubble. Inside the bubble, I can drop my shoulders, take deep breaths, find humor and love, and rest. I'm creative, productive, and silly. Trust soaks the peat under the moss on the floor of my bubble. I feel it squish between toes. Ahhhhh.  The bubble moves with me. I can step outside the bubble; the bubble can subtly pop and explosively vanish. Indeed, when outside the bubble, I'm a bit or much more tense. I no longer feel that trust-soaked peat between my toes.

Trust in journalism. Still complicated. Do we value connection over logic? Are we persuadable? What is the mix of facts, context, opinions? Learn from Joy Mayer Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem.. 1 Introducing Joy Mayer and Trusting News 01:46. 1 Trust is complicated (where have we heard that before?) 06:18. 3 Affective versus cognitive trust – connection or logic 09:31. 3 Persuadable but overwhelmed 11:03. 4 Engaging transparency 11:54. 4 Self-aware before convincing 14:08. 5 Opinion without context. Facts with context. 15:48. 5 Earning trust even if wrong 19:58. 7 Rating trust 21:23. 7 Transparently confusing 26:38. 8 Person first – meeting us where we are. Where are we? 27:59. 9 Falling off the cliff of trust 34:10. 11 Trust as digestible 36:28. 11 Reflection 38:36  12 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Web/social media coach, Kayla Nelson Inspiration from Josh Richardson, Jodyn Platt, Laura Marcial, Aaron Carroll, Barry Blumenfeld, Lynne Becker Sponsored by Abridge Links From Joy Mayer A UF project I'm loosely affiliated with that did research into how to make vaccine communication effective: https://covid19vaccinescommunicationprinciples.org/ A deck my team updates periodically, collecting research on trust in news: http://bit.ly/trustingnewsresearch Advice I wrote for an industry publication about how to consume news responsibly: https://www.poynter.org/ethics-trust/2020/how-to-consume-news-during-the-coronavirus-pandemic/ Healthcare Triage- Aaron Carroll's YouTube channel Related podcasts and blogs https://www.health-hats.com/trust-willing-to-be-vulnerable-worth-the-investment/ https://www.health-hats.com/pod113/ https://www.health-hats.com/pod106/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://www.health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem I live in a bubble. Inside the bubble, I can drop my shoulders, take deep breaths, find humor and love, and rest. I'm creative, productive, and silly. Trust soaks the peat under the moss on the floor of my bubble. I feel it squish between toes. Ahhhhh.  The bubble moves with me. I can step outside the bubble; the bubble can subtly pop and explosively vanish. Indeed, when outside the bubble, I'm a bit or much more tense.

Approaching my health as improv. Some stuff work at the moment; some don't. Listen, learn, appreciate. There are no mistakes. We are where we are, trying again. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem (Preface) 00:00. 1 Approach to professional practice 02:50. 1 Continual learning system 04:04. 2 Feeling in my Bones 07:30. 2 Trust, time, talk, connect, control (3Ts and 2Cs) 08:53. 3 Reflection 10:36. 3 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Web/social media coach, Kayla Nelson Inspiration from Gabrielle Pitman, Joey van Leeuwen, Jeff Harrington, Curtis Cates, Sara Snyder, Eric Solomon, Jennifer Keeney, Larry Mazza, Kristina Johnson, Kayla Nelson and Lechuga Fresca Latin Band Lechuga Fresca Latin Band: Alex Kahn – Trombone; Andrea Condit – Congas; Betsy Cowan – Vocals, Percussion; Danny van Leeuwen – Bari Sax; Jon Fraser – Trumpet; Josh Rosenstock – Bass; Karen Welling – Piano; Ryan Vasios – Alto Saxophone; Stephen DeBenedictis – Drums Mambo Inn composed by Mario Bausa performed here by Lechuga Fresca Sponsored by Abridge Links Related podcasts and blogs https://health-hats.com/the-silence-between-the-notes/ https://health-hats.com/pod109/ https://health-hats.com/comedy-improv-and-the-health-journey/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem (Preface) I keep a daily spreadsheet of steps walked and minutes playing music. I pause to reflect on my progress at the end of April every year. It's April 2021. I see that I've met my goal of 3,500 steps a day for 360 of 365 days with a daily average of 4,400 steps a day. My goal is to maintain. I have maintained my steps for the ten years I've tracked, although I've gone from one cane to two canes to two crutch canes. Still, I'm maintaining through the years and the seasons. I'm delighted to report I have spent an average of seven hours a week playing music for the entire past year. I averaged 2.4 hours a week in 2014, increasing from 4-6 hours a week over 2016-2020. I've bumped up to averaging an hour a day in the past year some because of COVID, some due to the coaching and motivation of weekly virtual lessons, but also taking the time after 30+ years of playing to learn theory, scales, chords, counting to four (keeping my place in four-measure chunks).

We are not our behaviors, diagnoses, or symptoms, but tellers of our many stories & owners of our health. Wisdom from fearless master medical coach, Shiri ben Arzi Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem (Preface) 00:00. 1 Introducing Shiri ben Arzi 01:51. 1 Bitchy, Pregnant, with Pulmonary Hypertension. What Could Go Right? 04:12. 2 Person, Advocate, Professional in the Same Teacup 08:09. 3 Relationship Builder Marrying Personal Story and Clinical Picture 11:36. 3 Programs, Habits, Diagnoses, Behaviors!? 14:47. 4 Loving Myself and My Ups and Downs 23:21. 6 Which Story, Whose Mouth, What Ears? 24:45. 6 Families of Secrets and No Secrets 27:34. 7 Tough Questions: What Do You Want from Life? 30:25. 8 Tough Questions: Conflicts with the System? 35:03. 9 Reflection 39:58  9 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Web/social media coach, Kayla Nelson Inspiration from Talya Miron-Shatz, Dafna Gold Melchior, Fred Gutiérrez, Amanda Hsiung Blodgett, Catherine Lynch, Geoff Racier, Grace Cordovana, Jan Oldenburg Serendipity from Susan Fantl Spivack LOVE AFTER LOVE by Derek Walcott The time will come when, with elation, you will greet yourself arriving at your own door, in your own mirror, and each will smile at the other's welcome, and say, sit here. Eat. You will love again the stranger who was your self. Give wine. Give bread. Give back your heart to itself, to the stranger who has loved you all your life, whom you ignored for another, who knows you by heart. Take down the love letters from the bookshelf, the photographs, the desperate notes, peel your own image from the mirror. Sit. Feast on your life. Listen & Read: https://www.brainpickings.org/2015/04/21/love-after-love-derek-walcott/ Sponsored by Abridge Links https://landing.mci-il.com/   Dafna Gold Melchior's Let's Clarify It Related podcasts and blogs https://health-hats.com/share-the-stories-help-the-helpers/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem (Preface) My mother had eyes in the back of her head. I heard that and thought about it throughout childhood. I'm not a mother. I don't have eyes in the back of my head. I do know that I am a force, and I create a wake. Think a speedboat, a ship,

North Star of personal and symptom goals help us operate at peak performance. Stay Well. Get Over It. Live the Best Life Possible. Try it. Makes a difference. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem (Preface) 00:00. 1 Peak Performance or Bust 02:03. 1 Beacons on the Hill. North Star. 05:08. 2 Medical Goals and Personal Goals. We Are Not Our Diagnoses. 09:45. 3 Stay Well. Get Over It. Live the Best Life Possible. 11:00. 3 Reflection 13:32. 4 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Web/social media coach, Kayla Nelson Inspiration from Curtis Cates, Fatima Muhammed-Ighile, Paulette Seymour-Route, Pancho Chang, Freddie White-Johnson, Susan Lin, Penney Cowan, Amy Baxter, Diane Shader Smith Sponsored by Abridge Links Curtis Cates' Hansel and Gretel Podcast Helping you come up with personal health goals https://health-hats.com/cds/ Related podcasts and blogs https://health-hats.com/pain-the-solution-many-solutions/ https://health-hats.com/personal-health-journey/ https://health-hats.com/salt-in-my-soul-an-unfinished-life/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem (Preface) I build most of my podcasts around conversations with my guests. Although I try to craft the story while I prepare, the chat can go anywhere, often in unexpected directions. Then I extract the story after completing the recording during editing. I use the Proem (Preface) and Reflection as vehicles to shape those stories. Sometimes I have no guest, just me talking to you about whatever's on my mind. These shorter episodes allow me to experiment, with music, word jazz, pilgrimage of sound. Today, I take inspiration from my podcasting buddies, especially, Curtis Cates, who has an amazing series about the fairy tale, Hansel and Gretel. He's had conversations with himself for twelve episodes and he's only on the third sentence of the fairy tale. Check him out in the show notes. So, here goes, a conversation with myself about the Journey Toward Best Health. Peak Performance or Bust Health Hats: So, Mr. Danny, you often talk and write about your health journey. What does that even mean? Where are you headed? Danny van Leeuwen: I'm trying to operate at peak performance as muc...

Rich with abilities, accomplished businessperson, autism advocate, Jimmy Clare uses mentoring and coaching well, and grabs opportunities as they appear. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. here Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem 00:00. 1 Introducing Jimmy Clare and Crazy Fitness Guy 00:57. 1 Starting and managing a business 03:21. 2 Coaching 07:44. 3 Making decisions with health team 09:47. 4 A businessperson with abilities 14:00. 5 Abilities, disabilities 17:22. 6 College career 18:54. 6 Advice for others 21:22. 6 15 minutes of fame 23:17. 7 Impact of COVID 24:214. 8 Podcasting 25:58. 8 Recognition 27:43. 9 Reflection 29:06. 9 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Web/social media coach, Kayla Nelson Inspiration from Sindi Hobbs, Mary Devlin, Ken Bates, Adriana Mallozzi, Mary Lawler, Jane Spielman, Emily Zaccardi Sponsored by Abridge Links Reach Jimmy Clare here: Pinterest LinkedIn Twitter Website Podcast Related podcasts and blogs https://health-hats.com/imagine-leverage-abilities-access-better-solutions/ https://health-hats.com/expanding-engagement-and-capabilities-of-people-at-the-center/ https://health-hats.com/breakthrough-to-college-on-the-autism-spectrum/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem When I meet new people who follow my podcast, whether I know them or not, my heart warms, and my chest swells with pride, humility, and connection. These past weeks my aunt told me she listens to them all, the daughter of an old friend said she's been listening for years, and Jimmy Clare reached out to me on LinkedIn asking me to interview him.  How did you find me? 'Oh, I've been listening for a long time.' I'm honored. Usually, I ask people to record a chat with me. Seldom do I receive a cold call. My first reactions are equally intrigue and disinterest. Scoops of ice cream and chopped liver- both familiar but don't mix well. Introducing Jimmy Clare and Crazy Fitness Guy Since I'd never met or heard of Jimmy when he messaged me, I started following him on LinkedIn and scheduled a call.  When we first chatted, I couldn't feel a connection until he started telling me about being in college and his business, Crazy Fitness Guy.  We scheduled a call. I like to hear and share a diverse set of peopl...

Where are you and your team on the continuum of engagement and partnership with patient-caregivers? Partnering is a long-term relationship. Fortunately, partnership breeds more engagement and more partnership. Take one more step on the continuum. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) The last mile of breakfast 1 Upstream, downstream. The last mile. Who cares? 01:36. 1 From vial to arm. The last foot. 03:11. 1 The last mile in healthcare, oh my. 03:56. 2 Workflow, life flow. Health literacy, life literacy. 06:14. 2 Engagement-partnership continuum 07:24. 2 Back to the last mile 08:44. 3   Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Web/social media coach, Kayla Nelson Photo by QPro on Unsplash Inspiration from Lacy Fabian, Michelle Lenox, Susan Haas, Ed Lomotan, Josh Richardson, Libby Hoy Sponsored by Abridge Links The term last mile comes from telecommunications, utilities, transportation, and package delivery services. As vaccines roll out, we think of vial to arm as the last mile. PCORI (The Patient-Centered Outcomes Research Institute) speaks about a continuum of engagement Related podcasts and blogs https://health-hats.com/covid-19-people-living-safely/ https://health-hats.com/patient_engagement/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show The last mile of breakfast Imagine fixing breakfast for your kids and leaving the meal on the counter? It needs to get to the table, the high chair, or the couch and then into the kid's mouth. Earning money, planning meals, shopping, preparing, cooking, and fixing aren't enough. They're all necessary but not sufficient. Breakfast isn't breakfast until it's eaten. Think of all that can go wrong between the plate and the mouth - no time to eat, doesn't taste good, disappointment, competition, crankiness.  Think of the plate to the mouth as the last mile of breakfast. Upstream, downstream. The last mile. Who cares? The term last mile comes from telecommunications, utilities, transportation, and package delivery services. The last mile means getting whatever into consumers' hands - the internet, electricity, the package. In transportation, the last mile is from the airport or train station to home.

Following my person-first approach to health, let's start with people's circumstances and life flow, put testing into a context of managing the risk of COVID-19. Then let's tackle what testing even means, what to expect from testing, and then circle back to the person – how do the results impact our circumstances and life flow? Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem 00:00. 1 Circumstances and life flow 02:33. 1 Managing risk of COVID-19 03:34. 2 Introducing ME Cortizas 04:44. 2 Don't understand COVID-19 testing? You're not alone. 05:46. 2 Screening, not diagnosis 09:27. 3 Do I need a test? 15:13. 4 Getting tested 19:42. 6 Circling back to the person 23:08. 6 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Web/social media coach, Kayla Nelson Sponsored by Abridge Thanks to these fine people who inspired me for this episode: Casey Quinlan, Vera Rulon, Marilyn Mann, Alexis Snyder, Howard Brightman, Amy Price Links Stop Covid in Its Tracks. Test Treat, Trace – Graphic from Involution Studios CDC Overview of Covid-19 Testing American Academy of Pediatrics Guidelines for Testing Potential for False Positive Results with Antigen Tests for Rapid Detection of SARS-CoV-2 - Letter to Clinical Laboratory Staff and Health Care Providers What it's Like to be Tested - Video Rethinking testing for COVID-19 -Healthcare Triage Video An Introduction to COVID-19 Testing – FDA Video COVID-19 Testing Explainer: Sensitivity, Specificity, and Predictive Values AACC Video Coronavirus Testing HHS.gov Interpreting a covid-19 test result from the British Medical Journal Related podcasts https://health-hats.com/covid-19-people-living-safely/ https://health-hats.com/pod113/ https://health-hats.com/imagine-leverage-abilities-access-better-solutions/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem People are stressed, tired of the pandemic, more focused on vaccines, fewer people are getting tested. Almost a year later we're hearing the same questions about COVID-19 testing. We heard: Who needs a Covid-19 test? Which test should I get? What do the results mean? What if I have a positive test? Do I need to stay home after I have a test?

Learn from the clowns. Embrace failure, take a deep breath, laugh, cry, engage. Revisit chat with Jason Stewart from Laughter League at Boston Children's Hospital. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem 00:53. 1 Introducing Jason Stewart 04:26. 2 From Theater to Ringling Brothers Circus 05:27. 2 From Circus to Boston Children's Hospital 08:36. 3 Embracing failure. It's what clowns do. 11:40. 3 Embracing failure. Caregivers can do it. 18:25. 5 The best human we can be 20:52. 5 Sometimes shit show at doctor's office 23:11. 6 Humanizing the doctor. Check body language 26:15. 6 Laughter is the best pain management 28:57. 7 Part of the circle of care 31:15. 7 Reflection 32:15  8 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Web/social media coach, Kayla Nelson Sponsored by Abridge Thanks to these fine people who inspired me for this episode: Dick Argys, Jay Stewart, Sue Spivack, Amy Faeskorn, Kayla Nelson, Patrick Egan, Jalyon Hallows, Todd Katzman Links Laughter League at Boston Children's Hospital Jason Stewart inspired by Howard Stern's style Send in the Clowns Our Best Selves National Caregivers Conference 2018 Related podcasts https://health-hats.com/seize-control-cede-control-as-ceo-of-your-health/ https://health-hats.com/lessons-from-the-clowns-when-going-to-the-doctors/ https://health-hats.com/ob-nurse-cannabis-nurse/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem Do you ever feel like you are part of someone else's play? Especially when you go to the doctor's office as a caregiver or caree (also known as the patient). You and your caregiver or caree feel like crap; you're exhausted, you're cranky. What are we doing here? The staff is unfamiliar (really, they're strange). What were we going to accomplish with these strange people? I'm a nurse, a patient expert, and a caregiver expert.  Yet most of what I know and teach goes right out the window when it's me in the doctor's office, whether I'm there for myself as a patient or there for someone else like my mom or son as a caregiver. It's 50/50 whether it's a good appointment or a shit show. I need different skills, an attitude adjustment,