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Poseł do Parlamentu Europejskiego Łukasz Kohut w rozmowie z Tomaszem Kycią przybliża wciąż mało znaną historię sowieckiej zbrodni na ludności Górnego Śląska w 1945 r: od grabieży, masowych gwałtów i mordów, przez deportacje w głąb ZSRR i zamykanie Ślązaków w obozach koncentracyjnych. Europoseł wskazuje na analogię do wojny na Ukrainie. Kontakt: cosmopopolsku@rbb-online.de Homepage: cosmopopolsku.de Facebook: www.facebook.com/cosmopopolsku Von Thomas Kycia.
Karnes City is a long way from Katowice, located in the Polish province of Silesia. But the Karnes County Courthouse was the place last week where Lukasz Kohut, member of the European Parliament representing Poland, and specifically Silesia, met with Silesians in Texas to foster cross-cultural relations and promote the cause of Silesia as a distinct region with its own language and culture. Kohut, who's represented his country in the European Parliament since being elected to the office in 2019, is proud to be from Silesia in southwestern Poland. In the past 600 years, it's been under the rule of...Article Link
W podcaście z cyklu "Mniejszości w większości" dwóch Ślązaków - Bartosz T. Wieliński, wicenaczelny "Gazety Wyborczej", i Łukasz Kohut, europoseł Koalicji Obywatelskiej - rozmawiają o tożsamości śląskiej. Czy język śląski umiera? Co zrobić, by zachować język i kulturę mniejszości śląskiej? Skąd wziął się matriarchat na Śląsku? Czym była Tragedia Górnośląska? I ilu Noblistów było Ślązakami? Współpraca w ramach projektu PULSE z n-ost (Niemcy). Więcej podcastów na: https://wyborcza.pl/podcast. Piszcie do nas w każdej sprawie na: listy@wyborcza.pl.
(2:53) Mutapainia Helsingin pormestarin paikasta - Harkimo ja Sazonov (14:56) Miten presidentti Stubb on onnistunut tehtävässään? (30:33) Yli 65-vuotiaille ohituskaista yksityislääkärille
W poniedziałek "Onet Rano." poprowadzi Marcin Zawada, którego gośćmi będą: prof. Jacek Czaputowicz, były szef MSZ; Łukasz Kohut, europoseł KO; Pamela Krzypkowska, wicedyrektor departamentu badań i innowacji w Ministerstwie Cyfryzacji; Anna Traczewska, Onet; Robert Szulc, podróżnik, autor bloga "Świat na raty". W części "Onet Rano. WIEM" gośćmi Mikołaja Kunicy będą Mateusz Wojtalik, redaktor prowadzący "Newsweek Historia" i Magdalena Rigamonti, Onet.
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Matt Kohut discusses with Ivan six things which should be better known. Matthew Kohut is the author of Speaking Out: The New Rules of Business Leadership Communication (2024). He is the coauthor of The Smart Mission: NASA's Lessons for Managing Knowledge, People, and Projects (2022), and Compelling People: The Hidden Qualities That Make Us Influential (2013), one of Amazon's Best Business Books of 2013. As the managing partner of KNP Communications, Matt has prepared CEOs, elected officials, and public figures for events from live television appearances to TED talks. Find out more at https://www.matthewkohut.com/. The best way to get someone to agree with you is to start by agreeing with them. Reciprocity makes the world go round. Machiavelli's dilemma–is it better to be loved than feared or feared than loved?––is a false choice. Few people remember this sentence that followed the question: “One should wish to be both, but…it is difficult to unite them in one person.” Knowledge is profoundly social. What you know is deeply influenced by your context and culture. It comes from a combination of experiences and reflective learning, and it's often difficult to articulate. If you want people to remember what you say, tell a story. As prophets and philosophers have known for millennia, stories stick with us. Purpose leads to motivation; struggle leads to meaning. A shared purpose gives a group something to strive toward. A shared sense of meaning only comes when experience is followed by reflection and discussion. Listening to understand another person's perspective takes different skills than listening to analyse a problem and make a decision. None of us really know what it's like to walk in another person's shoes. This podcast is powered by ZenCast.fm
In this episode, Cassandra interviews her long time client, self-care specialist and author of “What about me? Self love through Self care”, Chrissy Kohut, about how to create impactful self care rituals through the many stages of our lives and evolutions. Grab Chrissy's book “What about me?” : https://amzn.to/3OeORKe Visit Chrissy's website: https://www.ahealthyandhappyyou.com/ Say hi to Chrissy on instagram:https://www.instagram.com/chrissykohut/?hl=en Work one on one with Cassandra:https://cassandrabodzak.com/one-on-one-with-cassandra SIGN UP TO GET ACCESS TO THE *FREE* REALIGNMENT BUNDLE + CONSCIOUS LIFESTYLE DESIGN ASSESSMENT + BUNDLE —https://cassandrabodzak.activehosted.com/f/33 Grab the “Amplify your Magnetism” 40 day guided manifesting through meditation journey here:https://www.divinelydesignyourlife.com/offers/9W5F4G7C/checkout Grab my FREE Divinely Design Your Life Guided Meditation Bundle here: https://www.divinelydesignyourlife.com/meditation-bundle
Zapraszamy na wtorkowe "Onet Rano.". Gośćmi Agnieszki Woźniak-Starak będą: Mikołaj Dorożała, wiceminister klimatu i środowiska, Andrzej Kohut, amerykanista, ekspert Centrum Analiz Klubu Jagiellońskiego, Filip Cembala, aktor oraz Cezary Żak, aktor. W "Onet Rano Wiem." gościnią Marcina Zawady jest Joanna Zalewska, dziennikarka, psychodietetyczka.
The Living Process Episode 25 Guest Lynn Preston A Group Listening Revolution Welcome back to The Living Process and this episode with my friend Lynn Preston. Lynn had just returned from a Psychoanalytic Self Psychology conference in Rome, having caught covid on the flight back, so you may notice that her voice is a bit husky but only her energy is infectious. In this conversation, we discussed how to translate between her very different therapeutic communities and what she values from Kohut's psychoanalytic theories of development and the importance of empathy. Lynn mentioned a paper she wrote some time ago which attempts to bridge the different languages of Kohut and Gendlin's understandings and it went over very well with her psychoanalytic colleagues. The link to that paper, The Edge of Awareness is below. Lynn and I spoke mostly about her Community Empowerment group work. We discussed revolutionary listening and how groups could evolve to allow us to talk about our differences. We mentioned the ‘carrying forward' of the group process and how we know so little about this but one important principle according to Lynn is that not everyone has to agree. She suggests that we need Revolutionary Talking not just Revolutionary Listening in order to move beyond the dyad model. How can the practice of Focusing be expanded to practices of relating? How can the ‘us' of the group make the individuals more of themselves rather than less. How can we map the challenges of group interaction in the way that in Focusing we have mapped how to work personally and as a dyad? Is mapping out the group process the next step for us in focusing? Lynn believes this is the year to bring this further development into the world. Episode 25 with Lynn Preston: https://youtu.be/tY0fRybIWcM Lynn Preston is well-known in the Self Psychology community and the Focusing Oriented Therapy community. She has spent years teaching and writing about both forms of therapy and had a long-standing friendship with Eugene Gendlin. Lynn's recent efforts have included her Community Empowerment initiative as well as spearheading the Focusing Therapy Youtube channel. Lynn's contacts: lynpres@aol.com http://www.lynnprestonforp.com The link to the paper we mention is here: The Edge of Awareness: https://www.researchgate.net/publication/247527307_The_Edge_of_Awareness_Gendlin's_Contribution_to_Explorations_of_Implicit_Experience Links to all videos and podcasts: https://www.londonfocusing.com/the-living-process/ Focusing Oriented Therapies YouTube channel: https://www.youtube.com/playlist?list=PLx3FqA70kQWuHCHmEiZnkn1VcrRIPbcvk
Czwartkowe wydanie programu "Onet Rano.". Gośćmi Mikołaja Kunicy byli: Urszula Pasławska, PSL-Trzecia Droga; Marcin Wyrwał, Onet; Andrzej Kohut, amerykanista, podcast Po amerykańsku; Przemysław Rosati, prezes Naczelnej Rady Adwokackiej, sędzia Trybunału Stanu. W części "Onet Rano. WIEM" gośćmi Dominiki Długosz byli: Sabina Lipska, Dyrektor Video Ringier Axel Springer Polska oraz Andrzej Stankiewicz, zastępca redaktora naczelnego Onetu.
Valtiontalous kyykkää, vaikka leikattu on sakset viuhuten. Missä vika? (2:16) Kesä on ollut yhtä woketusta, jos joiltakin meistä kysyy. Kenen pussiin satoi? (13:57) Laittoivat kädet ristiin ulkoministeriössä - haittaakse? (27:46)
Zamów książkę Igora Janke: https://patronite-sklep.pl/produkt/sila-polski-igor- janke/ https://patronite.pl/igorjanke ➡️ Zachęcam do dołączenia do grona patronów Układu Otwartego. Jako patron, otrzymasz dostęp do grupy dyskusyjnej na Discordzie i specjalnych materiałów dla Patronów, a także newslettera z najciekawszymi artykułami z całego tygodnia. Układ Otwarty tworzy społeczność, w której możesz dzielić się swoimi myślami i pomysłami z osobami o podobnych zainteresowaniach. Państwa wsparcie pomoże kanałowi się rozwijać i tworzyć jeszcze lepsze treści. Układ Otwarty nagrywamy w https://bliskostudio.pl Mecenasi programu: e2V: https://e2v.pl/ Novoferm: https://www.novoferm.pl/
- To jest moment, w którym musimy już wiedzieć, jak ma wyglądać Komisja Europejska. Polska jest piątym największym krajem UE, byłoby dobrze, żebyśmy otrzymali wiceprzewodniczenie w Komisji Europejskiej, z tego, co wiem, ta pozycja jest w grze - mówił w Polskim Radiu 24 Łukasz Kohut (Koalicja Obywatelska).
Tomasz Lis 1na1: Łukasz Kohut - Mój konflikt z Lewicą i Biedroniem
[WSPÓŁPRACA REKLAMOWA] Zapraszamy na poniedziałkowe wydanie “Onet Rano.”, które poprowadzi dla Was Odeta Moro. W programie spotka się z: Pawłem Ślizem (Polska 2050, Trzecia Droga), Łukaszem Kohutem (europoseł), dr Przemysławem Sadurą (socjolog, UW) i Halinką Mlynkovą (wokalistka, autorka tekstów). W części “Onet Rano WIEM” wysłuchacie rozmowy Marcina Zawady z Dawidem Karpiukiem, Newsweek.
W pierwszej części Expressu Biedrzyckiej z 24 maja gośćmi byli Łukasz Kohut - Koalicja Obywatelska i Tomasz Trela - Nowa Lewica, z którymi rozmawiała Kamila Biedrzycka. Posłuchaj całej dyskusji! Oglądaj Express Biedrzyckiej na żywo w serwisie YouTube.Więcej informacji o programie na stronie Super Expressu.
„Nejhorší je začít, ale pokud už něco málo uděláme, často zjistíme, že to není tak hrozné, pokračujeme dál a uděláme toho mnohem víc, než jsme si původně mysleli,” říká mentor Honza Kohut z Jak se rychle naučit.cz. Jaké metody jsou efektivní a jak zvládnout zkoušku nebo státnice?
"Ja w finalnym głosowaniu się wstrzymałem, pomimo tego, że uważam, że pakt migracyjny jest bardzo potrzebny Europie i kształt tego paktu migracyjnego jest w miarę konserwatywny. Natomiast wielka szkoda, że przedstawiciele poprzedniego polskiego rządu nie dopilnowali, że Polska byłby jeszcze większym beneficjentem tego paktu. Można było wynegocjować lepsze zapisy" – mówił w Porannej rozmowie w RMF FM Łukasz Kohut, europoseł ze Śląska związany z lewicą, ale w najbliższych wyborach kandydujący z list KO.
Środowy odcinek "Onet Rano." poprowadzi Odeta Moro. Jej gośćmi będą: Łukasz Kohut, europoseł; Monika Grymowicz, ginekolog i endokrynolog; Karolina Wiewiórkowska ze schroniska w Korabiewicach "VIVA"; Bartosz Sąder, dziennikarz Onet Kultura. "Onet Rano. #WIEM" poprowadzi Bartosz Węglarczyk, a jego gośćmi będą Rafał Olbiński, artysta malarz oraz Tomasz Jaworski, mecenas i kolekcjoner sztuki.
Odbierz 150 zł za zakup polisy w Mubi ► https://mubi.pl/bonus-rozmowadnia-nt Partnerem kanału YT naTemat jest MUBI - internetowa porównywarka ubezpieczeń. Sprawdź, jak tanie może być Twoje ubezpieczenie samochodu, odbierz 150 zł za zakup i otrzymaj swój link polecający, dzięki któremu jeśli polecisz MUBI innym zyskasz dodatkowe 50 zł za każdą zakupioną polisę przez Twoją rodzinę i znajomych. Pamiętaj! MUBI, tanio ubezpieczyć lubi. Gościem "Rozmowy dnia" jest Łukasz Kohut, europoseł Nowej Lewicy.
Es wird zum ersten Mal autobiografisch bei Lachen & Weinen: Wir widmen uns den beiden Galionsfiguren der postmodernen Kultur, die in den 90er-Jahren Gestalt annahm und wissen, dass wir dabei nicht am Puls der Zeit sind.
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Gośćmi Odety Moro w "Onet Rano." są: Aleksandra Leo, Łukasz Kohut, Bartłomiej Przymusiński oraz Ignacy Święcicki. W części "Wiem" rozmowa Łukasza Kadziewicza z Dominiką Tomaszewską.
Dziś gośćmi Bartka Węglarczyka w "Onet Rano." są: Marek Sawicki, Andrzej Kohut, Paulina Filipowicz, Mateusz Trzaska i Łukasz Muszyński. W części "Wiem#" rozmowa Marcina Zawady z Łukaszem Borowiczem.
In this episode, it's all guys, a first! New WNEP media content guru Joe Kohut joins Jon Meyer, photojournalist Tim Hopkins, and Joe Snedeker to talk about his departure from print media to his new position at WNEP. If that sounds too boring, don't you worry, the conversation quickly descends to insect parts in the foods you eat, Jon Meyer being too nice of a guy, group singing and why Joe doesn't wear a wedding ring! That just begins the tip of the bizarre iceberg of Brown Bag questions from you, the viewers! Send your questions for future episodes to brownbag@wnep.com and press play to unleash the XY chromosome dominant episode discussion right now!
In this episode, it's all guys, a first! New WNEP media content guru Joe Kohut joins Jon Meyer, photojournalist Tim Hopkins, and Joe Snedeker to talk about his departure from print media to his new position at WNEP. If that sounds too boring, don't you worry, the conversation quickly descends to insect parts in the foods you eat, Jon Meyer being too nice of a guy, group singing and why Joe doesn't wear a wedding ring! That just begins the tip of the bizarre iceberg of Brown Bag questions from you, the viewers! Send your questions for future episodes to brownbag@wnep.com and press play to unleash the XY chromosome dominant episode discussion right now!
In this episode, it's all guys, a first! New WNEP media content guru Joe Kohut joins Jon Meyer, photojournalist Tim Hopkins, and Joe Snedeker to talk about his departure from print media to his new position at WNEP. If that sounds too boring, don't you worry, the conversation quickly descends to insect parts in the foods you eat, Jon Meyer being too nice of a guy, group singing and why Joe doesn't wear a wedding ring! That just begins the tip of the bizarre iceberg of Brown Bag questions from you, the viewers! Send your questions for future episodes to brownbag@wnep.com and press play to unleash the XY chromosome dominant episode discussion right now!
In this episode, it's all guys, a first! New WNEP media content guru Joe Kohut joins Jon Meyer, photojournalist Tim Hopkins, and Joe Snedeker to talk about his departure from print media to his new position at WNEP. If that sounds too boring, don't you worry, the conversation quickly descends to insect parts in the foods you eat, Jon Meyer being too nice of a guy, group singing and why Joe doesn't wear a wedding ring! That just begins the tip of the bizarre iceberg of Brown Bag questions from you, the viewers! Send your questions for future episodes to brownbag@wnep.com and press play to unleash the XY chromosome dominant episode discussion right now!
On today's episode of the G Word, our guests will be discussing the CanGene-CanVar programme. Funded by Cancer Research UK, the 5-year programme aims to create an interface between NHS clinical care and research that will expand genetic testing access for those with inherited cancers. Our host Amanda Pichini, Clinical Lead for Genetic Counselling at Genomics England, is joined by Dr Helen Hanson, Consultant in cancer genetics at the Peninsular Regional Genetic Service, Kelly Kohut, Lead Genetic Counsellor at the South West Thames Centre for Genomics, and Rochelle Gold, Patient Representative on the CanGene-Canvar research programme and co-founder of BRCA Journey. "There is also the possibility of finding out genetic information that's familial or inherited, which could mean that the information is not only important for the person who is being treated for cancer at the current time but also as a next step informing relatives that they might have a higher chance of getting cancers in the future due to a genetic variant..." You can read the transcript below or download it here: How-are-genetic-tests-transforming-cancer-prevention.docx Amanda: Hello and welcome to The G Word. My name is Amanda Pichini and I'm the Clinical Lead for Genetic Counselling at Genomics England. We know that cancer is a very common disease. About one in two people will develop cancer at some point in their lifetime. Cancer is a disease of the genome involving many changes to a person's genome over time as well as other factors. Only a small proportion of all cancers are inherited, but this can have a significant impact for those families who have a much higher risk of cancer and options to reduce their risk. Today I'm delighted to be joined by Dr Helen Hanson, Consultant Clinical Geneticist; Kelly Kohut, Consultant Genetic Counsellor; and Rochelle Gold, Patient Representative and co-founder of BRCA Journey. We'll be discussing the CanGene-CanVar programme which aims to link NHS clinical care and research to expand access to genetic testing and care for people with inherited cancers. Welcome, Rochelle, Helen and Kelly to The G Word. Thank you for joining me today. Let's start with some introductions. Rochelle, over to you? Rochelle: Hi, everyone. I'm Rochelle and I'm one of the Patient Reps on the CanGene-CanVar research programme. I also co-founded an organisation called BRCA Journey that helps to raise awareness of the BRCA genetic mutation amongst both clinicians and the community, and also supports people who might be at risk of the mutation or who are thinking about testing, all the way through to maybe having preventative treatment or preventative surgery. We support those with that decisions. We're not genetic counsellors but we do basically talk to people about our experience and knowledge that we have of what it's like as a patient to be someone living with the mutation. Amanda: Thank you. Could you briefly tell us what BRCA is and how you came to be a patient? Rochelle: BRCA is a genetic mutation that puts people at greater risk of breast and ovarian cancer. My mum had the mutation, in fact she had two of the mutations which is apparently quite rare. She passed away from breast cancer and just before she passed away I found out that I had the genetic mutation as well. I personally have had preventative surgery and reconstruction to prevent myself from getting breast and ovarian cancer. I got involved in being a patient rep so that I can advocate for people who may have the mutation, but also make sure that as many people as possible can be tested and be aware that they have the mutation and have that power to have the knowledge to be able to do something about it should they so wish. Amanda: Thank you so much for sharing that with us. Kelly, over to you? Kelly: Hello, everyone. I'm Kelly Kohut, I'm the Lead Consultant Genetic Counsellor at the South West Thames Centre for Genomics, which is based at St George's Hospital in London. For many years I've been working in clinical practice in genetic counselling, seeing patients and their families regarding personal or family history of cancer, offering genetic testing where that's available, and then giving the results and helping to refer people on for surveillance programmes and to discuss risk reducing options, and also help a lot with communication within families, sharing the information from the genetic test results. For the past few years, I've also been doing my own research as part of the CanGene-CanVar programme, funded by the charity Cancer Research UK. This has involved partnering directly with patients and other expert stakeholders to co-design a patient website to support decision-making around the genetic chances of getting cancer in families. Amanda: Thank you. And Helen? Helen: Hi, everyone. I'm Helen Hanson, I'm a Consultant in Cancer Genetics. I'm based at the Peninsular Regional Genetic Service which is in Exeter. In my clinical practice I see patients who either have a cancer diagnosis to consider whether they may have an inherited susceptibility or people who maybe have a family history of cancer to try and determine if they are at risk due to their family history. Like Kelly and Rochelle I've also been involved in the CanGene-CanVar programme for the last four years. I've been involved in work package three of the programme which is developing clinical guidelines with the patients who have an inherited predisposition to cancer. I was also fortunate enough to be given some funding to carry on with this work beyond the programme in the new NIHR Exeter Biomedical Research Centre. Also, I'm currently chair of the UK Cancer Genetics Group, who has an aim of improving the management of patients who have an inherited predisposition to cancer. It's been really great to work on all these different things and try and bring things together to try and improve care for patients who do have rare inherited genetic conditions predisposing to cancer. Amanda: Fantastic. Thanks, everyone. Kelly, I wondered if you could start us off by just explaining a little bit more about how genetics and genomics is relevant to cancer. Especially inherited cancers, why is this an important thing to talk about? Kelly: The availability of genetic testing has been increasing steadily over the years. Currently from pretty much anyone who's been diagnosed with cancer there should be some awareness around the possible benefit of knowing the genetics behind the development of that cancer and whether any genetic or genomic testing might help to choose more personalised treatments or surgical options for that cancer that's been diagnosed. There is also the possibility of finding out genetic information that's familial or inherited, which could mean that the information is not only important for the person who is being treated for cancer at the current time but also as a next step informing relatives that they might have a higher chance of getting cancers in the future due to a genetic variant and that they could ask their GP for referral to genetics to be offered genetic testing and to find out about their chances of getting cancer and the choices for how to manage that. Amanda: Thank you. There are clearly some important things that someone would do differently when they know they have an inherited cancer. Helen, how can we make sure that clinicians and patients and families know what do to in these situations? Helen: Following on from Kelly explaining the amount of genetic testing we can offer has really increased over the last five to ten years and we're not in a position to offer many more patients genetic testing, it's important that we also consider what to do with that information when we discover somebody does have a pathogenic variant or a mutation in a cancer predisposition gene. There are over 100 different cancer predisposition genes described and actually having a variant in one these genes is rare. It's difficult and like other conditions in medicine due to their rarity to really understand how best to manage these patients. But what's very important is that we try to understand how best we can help patients manage their cancer risk based on the lifetime risk of cancer and the particular cancers that they can develop and ensure that patients across the country are all being given the same advice, the same information about their cancer risks. Through the CanGene-CanVar programme we've had a whole work package which is devoted to clinical guideline development where we've looked at a number of these genes and looked at the evidence that is available in terms of cancer risks, the utility of surveillance or early detection of cancers in that condition, and also whether risk-reducing surgery could be offered. Really try to bring together groups of experts to discuss the evidence because for some genes it really is quite limited due to the rarity of the condition. The overarching aim is really to develop guidance that is relevant and can be offered in our current clinical practice and is consistent to all patients who have a variant in one of these genes. Amanda: You mentioned that many of these inherited cancer conditions are very rare. Is there a need to look internationally or collaborate internationally? How do you pull some of these things together when there's so little information? Helen: We definitely have found it really helpful to have international collaborations. Some of these conditions there may be very few patients in the UK who have this condition, so each individual clinician who works in cancer genetics may have only seen one or two patients with the condition than themselves and, therefore, collaborating with international colleagues has been very helpful and we have recently published some guidance for a condition BAP1 tumour predisposition syndrome which increases an individual's lifetime risk of developing mesothelioma, which is a type of lung cancer, renal cancer and melanomas of the skin and eye. This is a rare condition, but we worked with European colleagues to develop a set of guidelines advising what surveillance the patient should have, so looking to melanomas, looking for early detection of kidney cancers, so having that international collaboration has been really very helpful because in the UK there are so few cases per centre of individuals who have that condition. Amanda: That sounds really helpful. Rochelle, we know that shared decision-making is so important in healthcare. How can we make sure that the voices of patients are reflected within these guidelines that were developing and that it's clear to them what needs to happen for their healthcare? Rochelle: I think it's really important that patients are involved in the development of the guidelines, first of all, and actually within those guidelines there is stuff that talks about that, being about shared decision-making. A lot of these guidelines are in a language that are quite a clinical language that is not necessarily accessible to patients themselves. It's really important that they're part of the creation of them but also that there are things out there that enable people to understand what are these guidelines about, what do these guidelines actually mean in practice. When you find out that you have a particular genetic mutation, of course, the first place you probably go is Google. You find a hell of a lot of information and you find all sorts from different countries and different people and different organisations. You're like which is the thing I need to look at, which is the thing that actually tells me what's going on, which is the thing that really helps me to understand what this actually means for me and what should happen to me? What is the pathway for me, etc. I think we also need to recognise that people have different levels of health literacy as well. I am someone who can probably navigate my way around a very complex system, which is the NHS, maybe better than other people. But there are plenty of people out there who this is new people, this is a completely new thing that's happened to them, a completely new thing to understand. If you're not used to being part of health systems and navigating your way around it, it can be quite scary. What does mutation mean? What does it mean for me? What does it mean to my future? What does it mean for my family? All this information. There needs to be something somewhere that talks about this, some sort of lay way and helps people to understand what this means for them and helps them to engage with it. To some extent, that's where my organisation was born from, that thing about having somebody who can just talk about it in normal words, in normal terms and normal views of what these guidelines actually do mean. The fact is they are just guidelines, they don't tell you this is what you do. You're this person, you're in this circumstance, you do this, it doesn't. There's some ambiguity there that needs to be navigated by the patient and they need support in order to do that. Amanda: That's a great point. Having previously worked as a genetic counsellor, also seeing patients with inherited cancer conditions, it really strikes you how individual each person's journey and decisions are. They're thinking about all kinds of factors in their life or in their family's life. Navigating through that and understanding do I have surgery or do I have screening and how do I make decisions about this is based on my previous experiences and so many other factors. Having access to different sources of support to help people navigate through that feels incredibly important. We've been talking a bit about inherited cancers in general, but you're all here because you're involved in the CanGene-CanVar programme. Kelly, could you tell us a bit more about what that is and what he programme is aiming to achieve? Kelly: The CanGene-CanVar programme is a five year grant funded by Cancer Research UK. It involves six different work packages, so lots of experts all around the UK have been allowed to have some dedicated time to work on specific areas where there hasn't been enough resource put in in the past which has resulted in a real gap between the research and the current findings and actually using that information to benefit patients by bridging the gap and putting those research findings into clinical care. My programme is in work package four which is co-designing patient resources which are decision support interventions. Basically, it's a website and it can be printed as a booklet and it's interactive and it's up to date and it's personalised to help convey the complicated information about genetic cancer conditions in a way that's meaningful and patients can understand, and it helps them with their personalised shared decision-making. The CanGene-CanVar programme is underpinned by the patient reference panel and they've been involved, including Rochelle and others, from the conception of the idea of the programme and all the way through with various different activities helping to look at documents as they're developed, before their finalised, and giving input in focus groups and one-on-one and email conversations. They're called upon frequently to share their lived experience and say what's important to them when they make decisions and that's really helped to drive the direction of the research and inform the results before they're published. Amanda: That sounds like a really helpful approach to developing something in a way that's really working very closely with patients and participants. Rochelle, it sounded like you were involved in that. Can you tell us a bit about what that was like from your perspective? Rochelle: It's really rewarding, it's really motivating to be actually one of the patient reps in relation to this. I don't want to make my colleagues from the team blush, but it's just such an inclusive environment where as a patient is really welcomed, really heard, it's very much a partnership and that's been really, really important and it makes you feel valued as a patient and actually the importance of the lived experience the patient view has really been prominent in this. I would say that's why it's helped develop such a useful tool, the fact as a patient people are really valuing and taking into account our lived experience, our views, our understanding. It's been quite fun in some of the sessions. There have been some good debates between us and some of the clinicians and it's been really good and really useful. I think some of the people who maybe haven't encountered a patient panel before and engaged with patient's lived experience have probably learn a lot from it because we are pretty empowered to use our voice in this. It's been a really great experience. Amanda: I'd love to dig into those debates a bit more. Kelly, were there things that you changed in the decision aid as a result of some of those discussions or as a result of that input that maybe surprised you? Kelly: We have made changes based directly on what we've learned from the patients presenting their lived experiences. They've been very open and honest with us. Like Rochelle, I felt so privileged to be part of this real partnership with the patients. As a genetic counsellor who had many years of experience in clinical practice before moving into this research role, I've been really surprised but also gratified by how much I've been able to learn from the patients in a different way because I am sort of taking a step back, I'm there as a researcher and not directly as a clinician looking after someone one-on-one in clinic and just thinking about their specific needs at that time. But because I'm hearing from people from all different situations, different parts of the UK and other countries and maybe it's 10/20 years since they had their genetic diagnosis are actually getting a bigger picture of their care needs that we might not have heard about as the clinicians on the ground because they might not be coming back to tell us. If we haven't opened the door to that conversation about their personal situation or who's influencing them or what's important to them when they make decisions, we just might not have learned about the thing they're grappling with and they've gone off and maybe Googled, they've found a patient support group or something else to support them. In my research and in my interviews and the focus groups, all of the activities I've been learning about the gaps in care, what might be needed to address that. The decision aid has not been yet ruled into clinical practice but we're very keen to get it out there and everyone wants it and wants to use it. We want to make sure that we've developed it in a robust patient-centred way as much as we can for us before we put it out. It will always be updated and go through refinements, but hopefully in the New Year we will be able to let people start using it in the real world situation. Amanda: That's great, I'm sure you're looking forward to that. Helen: I was just going to add to that in terms of the guideline development we've had a number of consensus meetings where we've made decisions about guidelines, for example, genes that can be predisposed to ovarian cancer and we've included patients from the patient reference panel and from other patient groups in those consensus meetings. Again, as Kelly said, that's been so helpful because it's really brought something to those discussions and it is a different perspective than when we see patients in clinic because often we're seeing them at the point of genetic testing or maybe for their results, but actually that doesn't give us that overview of the whole patient journey and the whole patient experience. I think that has been really one of the benefits of this programme and Kelly has been really pioneering the co-design of patient information leaflets, decision aids with patients. Rather than clinicians designing things for patients that we think that they will understand, it's actually working with patients from the start to get things right the first time. It's been a really great part of this programme. Amanda: Rochelle, did you want to add something further here? Rochelle: Yes. I think one of the sessions that we had as a patient and clinician and researcher session that really stood out for me was when we started looking at how do people make decisions. We had academics and researchers who've looked at how do people make decisions, talk about the knowledge base and the research base that we have about it. As a larger group of patients we got together to discuss about how have we made decisions. It was really interesting because I don't think I've ever reflected on how I made the decision and what came from that in terms of what I did about having my mutation. Hearing about how other people did as well, that session really does stick in my mind and actually I learnt a lot as a person about decision-making theory but also about myself and reflecting on how I make decisions. So as a patient involved in this, it's not always about what I bring to this but actually as a patient rep you get a lot from it, too. I've learnt a lot from the colleagues that I've worked with. Amanda: That's fantastic. It's really great to hear the careful thought that's gone into this, a real excellent example that hopefully others can look to. I think, Kelly, hasn't your work won an award recently as well? Kelly: We as a whole team won an award from the academic health science network and the NHS Confederation, it's called the Innovate Awards 2023. This was for excellence in patient and public involvement in transformation and innovation. Yes, it was a chance to showcase the really positive experience that we've had. I think on all sides we've learnt a lot from each other and just to hope to inspire other researchers and clinicians to take this co-design approach with patients because we all benefit from it so much. We think that the resources, the guidelines, everything that we develop will be better from the start if we work together throughout the project. We're really hoping to encourage others to consider from the beginning of their idea about a research programme or clinical development to bring the patients in right at the start, because they can really help to guide where things go next and then throughout. Even through to publications being on, committees, being co-chairs, presenting together at conferences, that can all help to really share the experience and the benefits that we get from the partnership. Amanda: That's great, congratulations. Coming back now to some of the aims of CanGene-CanVar and trying to bridge that gap, as you said, between research and clinical care, I guess that means there are some needs that still aren't being met that are falling through that gap at the moment. Helen, from your perspective what are some of those unmet needs that we currently have or areas that are still needing improvement? Helen: I think there's still lots that we have to learn, particularly about individual risks for patients. We might have patients who all have a pathogenic variant in a certain gene but their risks might be slightly different due to factors that can modify their risk. Trying to understand some of those risks better so that we can really have much better informed discussions with patients about their lifetime cancer risks I think would be really helpful. Work package one of the programme is really focussing on that and looking at some of the information we have through national registries and trying to understand risks for specific genes better, which will help our discussions with patients, and then we still need to understand, which is more outside the programme, more how surveillance, so early cancer detection through screenings such as mammograms or ultrasounds for different cancers can help detect cancers early. There's still lots of information that we need to learn. I think Kelly's decision aid which has been focussed on Lynch Syndrome, I think that can be translated across lots of other genetic conditions, because for each gene there is a different set of decisions. For some of the genes that we developed clinical guidelines for we might be recommending slightly different management or for some of the genes we've recommended maybe a minimum and an extended level of surveillance, particularly for a gene called DICER1 where we've offered different options in childhood. Decision aids would potentially help in some of those other genes building on the work that's already been developed as part of the programme. Although the programme is coming to an end in the next year, I think there's still lots of work to be done in this area. Amanda: It really sounds like you've all been collectively improving how much this work is worthwhile, so that's great to hear. Rochelle, how about for you, are there areas that you would see as unmet needs or areas where we or research can improve to help patients and families with inherited cancers. Rochelle: Similar to some of the stuff that Helen was saying, knowing more about what happens when people have different types of treatment, different types of surveillance and monitoring and stuff like that, I think there are things that are evolving all the time. I think in the end when you think about gaps, there's nothing that's going to be written down on paper that says if you have this, do this. In the end, every single patient is an individual with individual circumstances. I think until we actually know that if you do this, this happens and this happens, this is going to be your chances of survival if you go through this route. Even then when you've got the chance of survival, that's literally just a probability, it's not a binary this will happen or that will happen. There's always going to be a need for discussion, there's always going to be a need for these brilliant genetic counsellors that we have to talk us through some of those complex decisions that we have to make. I think, yes, we'll get more information, we'll get more evidence, we'll get more understanding of treatments that work best for different people, and we'll get it out there and we absolutely do need to do that. Even when you have all the information you need, even if you made a solid decision, I mean, when I found out I had the mutation immediately I was like, right, that's it, I'll have preventative surgery after what happened to my mum. It was an absolute no-brainer for me. For other people it might not have been if they were at a different life stage. I'd had my kids, I didn't need my ovaries, I didn't need my womb, it was pretty clear cut. Even then when I was thinking about the different treatment and when to have that surgery, I got most of my information from bumping into somebody in the ladies' toilets who has been through it before. I think there's always going to be a need in terms of being able to have those conversations to take in all the information you do that and make some sort of informed decision. What came out of that decision-making workshop and all the other things that we did about probabilities, it's all just a model. It's a model of what might happen. The thing is, all of these models, they're all wrong, they just help you maybe make a discussion or a decision that might be right. You just never know. I still don't know if the decisions I made were the right decisions either. There needs to be that space for people to consider their options, you're never going to get the definitive answer. Amanda: An important message there. We talk a lot about using digital tools to be able to do things better at scale, better ways to give information, but I think what you're saying is we can't replace certain elements of human connection, we can't underestimate the value of that. You made a really good point earlier as well about how so many of these decisions have uncertainty and it can be really difficult to navigate the complexities of a health system. Perhaps even more challenging if you have struggles with health literacy or if you are an underserved group in some way or another. Kelly, I think you mentioned that some of your research has also touched on developing information for underserved groups. Can you tell us a bit more about that? Kelly: We recognised that there are many underserved groups that are not represented in research, in literature, and applied for additional funding to do some specific targeted projects in the community. There were a couple of examples I can mention. One was inspired by colleagues at the Royal Marsden who made some videos about prostate screening and the had black men and their family members talking about this in a relaxed barber's shop setting. Through reaching out into the community I was connected with Lee Townsend from Macmillan who's been making these barbershop videos around London for the last seven years. He's focussed on a number of topics like mental health, vaccination and cancer. We connected and it was really about making that connection in the community, him as a trusted leader, and having formed partnerships with some of the barbers who opened up their barbershops for filming these sessions and went way beyond that. One of them has actually trained as a counsellor himself because he said men are coming for a haircut and actually they have a bald head, they don't need the haircut, they're coming actually for the chat. Because it's benefitting their mental health and they felt able to open up about topics that they wouldn't talk about even at home with their family members or with their friends, such as symptoms of cancer, going for cancer screening or presenting for treatment if they were symptomatic. It's really powerful. We've actually filmed six videos with black and minority ethnicity patients, talking about their cancer experience and they've really both helped others by setting an example that it's okay to talk about these things. Also, through the process an added benefit was helping themselves, so it was peer support. When they came to the barbershop to film their stories, they didn't need to stay for the whole time but they did stay for the three hours. They said afterwards how helpful it was just to hear others in a similar situation sharing their stories. One of them told me he's got up on stage and shared his cancer journey and he's been going to these patient groups and talking when he didn't feel able to do that in the past. It's been a great project and we're going to be adding the videos to the CanGene-CanVar patient decision aid website soon. Another thing that we've done in the diet and lifestyle section of the website where it talks about things that people might do to lower their chances of getting cancer have partnered with Professor Ranjit Manchanda who had some colleagues in India and made some infographics that specifically depict patients of a South Asian heritage and the types of foods that they might be choosing to give examples of how they might for example try to get more fibre in their diet to lower the chances of getting bowel cancer or trying to eat more fruits and vegetables or drink less alcohol. It shows images of Indian patients. What people have told me in my research, my interviews, focus groups, is they tend to go and try to search for something that means something to them, so they're looking for someone like me. One of the patients I filmed she said that she had breast cancer as a young black woman and she was only middle-aged women on the websites. She thought why is this, do black women not get breast cancer or young women like me? For her to share her story was very brave but also has the potential to help a lot of other people in the community. Amanda: That's really powerful, so understanding those nuances in different cultures or communities or groups is just so crucial to really being able to also develop information or messages or provide care that's going to really reach those people where they are, I guess. This has been a really fantastic conversation. If we could end with a final question, it would be great to hear from your perspective just one thing that you'd like to see in the next five to ten years when it comes to care for inherited cancer susceptibility conditions. Helen, let's start with you? Helen: I think that in developing the guidelines one of the things that we've had to struggle or grapple with is a lack of evidence and the lack of the data that's available for some of these conditions. I'm really hoping that over the next five to ten years that we will see much more data on cancer risks and outcomes of surveillance progress for people who have an inherited predisposition. Then we can utilise that information to be able to share with patients to enable them to make best decisions about their care. There's a number of initiatives that are currently underway thinking about how we might better collect data on patients with inherited cancer predisposition in the UK, through registries, so I am really hoping that we manage to get some useful data that we can then use in our discussions with patients going forward. Amanda: Thank you. Kelly? Kelly: I think that over the next five to ten years as awareness and availability of genetic testing continues to increase, we know that there will be more and more families identified who have a higher genetic risk of getting certain cancers. We can't replace that personalised counselling that takes place, face-to-face or sometimes telephone and video appointments with a healthcare profession. So there are more resources needed for the NHS to deliver this. To compliment that, the patient website decision aid that we have co-designed is one way to help. What patients tell us they would like, access to a central trusted source of information that's up to date. Importantly in genetics it's very fastmoving, there's a lot of research, guidelines are changing, and it's very crucial to have information that's correct and relevant for people, and also meaningful. We can only do that by partnering together with patients and co-designing things rather than designing them and asking them afterwards if they're useful. It's a partnership all the way through that we all benefit from. As I said earlier, it's not a one-size-fits-all, decision-making is so personal and shared decision-making is recommended but we don't always have enough time in clinic to really address all of the issues that the patient might not have even thought about themselves. Having something like a patient-facing resource website booklet that they can look at in their own time, prepare for their questions that they really want to focus on in clinic, it might help give them the confidence to bring something up that they might not have otherwise. It's about a number of different ways of helping to support people. We've identified that there are gaps in care that we could try to help address if we have more resource in future. Those are my aspirations. Thank you, Amanda. Amanda: Thank you. And Rochelle, to you? Rochelle: I think for me I would like to have as many people as possible to understand or know about their genetic mutation status. We know people don't even know about the fact that they may have a genetic mutation that may make them more susceptible to cancers, and we know that even then if you do can you get access to testing to know whether you've got it or not. That is the most important thing. My mum, if she'd known that some of this was related, if she'd had that awareness that breast and ovarian cancer in your family was related to potential genetic risk, maybe she would have pushed harder to get testing and maybe she wouldn't have been tested when it's too late. In the end, all this knowledge and empowering people with knowledge, whether that be about empowering people with the knowledge that they may have a genetic mutation, there's a possibility of the genetic mutation, that these things are related and empowering people through the knowledge of knowing their genetic mutation status, all that is something that saves lives. From my view, it undoubtedly probably has saved my life and so my hope for the future is that we can empower more people like me and we can save more lives. Amanda: Thank you for our guests today Dr Helen Hansen, Rochelle Gold and Kelly Kohut. If you enjoyed today's episode, we'd love your support. Please subscribe to The G Word on your favourite podcast app and like, share and rate us wherever you listen. I've been your host, Amanda Pichini. This podcast was edited by Mark Kendrick at Ventoux Digital and produced by Naimah Callachand. Thanks for listening.
Całość TYLKO w aplikacji Onet Audio. Subskrybuj pakiet Onet Premium i słuchaj bez limitu. Raport międzynarodowy znajdziesz tutaj: https://onetaudio.app.link/RaportMiedzynarodowy Młode pokolenie Amerykanów szuka alternatywy, a Trump bardzo celnie odczytał nastroje społeczne i zmiany zachodzące w USA. Jego powrót do Białego Domu nie jest więc niemożliwy, a nawet staje się coraz bardziej prawdopodobny. Tak uważa Andrzej Kohut, amerykanista i gość Witolda Jurasza w „Raporcie międzynarodowym”. „Dobrze zrozumiał, gdzie przesunęła się część elektoratu i postanowił jej poszukać” – diagnozuje ekspert. „Niespodziewanym prezentem są dla Trumpa procesy, które zostały mu wytoczone” – dodaje. „Oddały mu to, czego nie miał na początku prezydentury Bidena – pełne zainteresowanie mediów i centralne miejsce wśród republikanów” – podkreśla Kohut, który zwraca uwagę, na dużą przewagę Donalda Trumpa w prawyborach w Partii Republikańskiej. Gość Witolda Jurasza wskazuje na szereg elementów, jakie decydują o popularności byłego prezydenta i te, które przyczyniają się do osłabienia notowań Joego Bidena. „Na wskaźnikach makroekonomicznych amerykańska gospodarka wygląda dobrze, natomiast znaczna część Amerykanów powie, że gospodarka wyglada źle, a winny jest Biden” – podkreśla. Jak zaznacza: „Ci, który utknęli na dole drabiny społecznej, nie mają takiej łatwej drogi w górę”.
Gośćmi Beaty Tadli w "Onet Rano." są: Łukasz Kohut, Jacek Dehnel, Piotr Tarczyński, Karolina Rogaska, Kasia Moś i Marek Dyjak. W części #WIEM rozmowa Odety Moro z Mirosławą Makuchowską.
Clif Kohut is the dad behind “The Reliable Dad”. He is a husband, father of two and the founder of @thereliabledad. The Reliable Dad's mission is to celebrate “present fatherhood” in today's society as well as collaborate with fathers who crushing it as Reliable Dads. You can support him and his company by following him on Instagram @thereliabledad and subscribing to his newsletter at https://the-reliable-dad.beehiiv.com/subscribe https://www.4fitfatherhood.carrd.co/ --- Support this podcast: https://podcasters.spotify.com/pod/show/4fitfatherhood/support
Gośćmi Janusza Schwertnera w "Onet Rano." są: Łukasz Kohut, prof. Adam Bodnar, Bela Komoszyńska i Piotr Blak. W części #WIEM rozmowa Łukasza Kadziewicza z dr. Michałem Sutkowskim.
Clif Kohut is the dad behind “The Reliable Dad”. He is a husband, father of two and the founder of @thereliabledad. The Reliable Dad's mission is to celebrate “present fatherhood” in today's society as well as collaborate with fathers who crushing it as Reliable Dads. You can support him and his company by following him on Instagram @thereliabledad and subscribing to his newsletter at https://the-reliable-dad.beehiiv.com/subscribe https://www.4fitfatherhood.carrd.co/ --- Support this podcast: https://podcasters.spotify.com/pod/show/4fitfatherhood/support
Gośćmi Odety Moro w "Onet Rano." są: Cezary Tomczyk, Łukasz Kohut, gen. Waldemar Skrzypczak (w rozmowie z Marcinem Zawadą) i Natalia Przybysz. W części #WIEM rozmowa Beaty Tadli z Maciej Sadowskim i Victorią Umańską.
In this episode, we get real with something I'm passionate about - healthcare power of attorney documents. What is that?! Abby Addams, of Kohut, Addams, and Randall here in Wilmington, NC, shares with us how this document protects us when we can not direct our own healthcare decisions. She graciously shares how to make one, what to do with it after it's made, and describes challenges she's seen in her practice when family drama pops up during difficult times. There's a little laughing in this episode too, about who really loves Me-Maw the best!Helpful links from this episode: Download a free NC Healthcare power of attorney here!Corporation of Guardianship (which will serve as a healthcare agent if an individual does not have anyone to name)Trying to get healthy and stay healthy is f-ing hard! Everybody struggles with some aspect of it, no matter what they look like or what they tell you. There is no magic formula - a healthy lifestyle is a choice we need to make daily. This podcast is here to support, inform and entertain you on your journey toward health. Join Amy and her guests as they talk about their own struggles, interview super-cool “experts”, and discuss all topics related to health.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
Gośćmi Odety Moro w "Onet Rano." od 7.55 są: Łukasz Kohut, Sofia Ennaoui, Daria Górka oraz Bovska. W części #WIEM rozmowa Łukasza Kadziewicza z Pauliną Ihnatowicz.
David and Isabelle continue their conversation with poet, speaker, and activist for people with disabilities, LeDerick Horne—and get to hear him recite some of his incredible spoken word poems. They talk about how songs taught them to spell, the power of oral traditions, and an incredible school in Kenya that expanding education and access for those with disabilities. Seriously, his poetry will give you life. (Part IV of IV)------LeDerick continues sharing some of his poetry, describing his father's record collection and his mother's love of music—he recites his poem, “Alice Street Soundtrack,” Alice Street being the street where he grew up. The website understood.org (see below) shot an interview with them and how in one of his last lines, he spells out the word “FRESH,” which is one of the first words he learned how to spell, and it's also how David learned how to spell it first time. LeDerick and David share how they learned to spell Common from his songs, too. David feels so seen, having symbol recognition disorder, he has a 4th or 5th grade spelling level and learning how to spell words was always hard, the power of songs to be able to help us learn to spell (like Gwen Stefani with “Bananas” and Fergie with “Glamorous”). LeDerick describes how the written word (thanks, Gutenberg!) Has become such a big force in the world, which he respects, but he has a deep love of the spoken word and the necessity of the spoken word, with rhyme, with rhythm. He describes the Griots (for more info, see below) being the first MC's in Africa. LeDerick shares one more poem he wrote in 2020, celebrating the 30th anniversary of the ADA and also the national uprisings related to social justice and policing—and he wanted to write something about the beauty of those with disabilities. He recites “Until Every Barrier Falls.” David hearing LeDerick talking about the things he does in his poetry changed his understanding of LeDerick. Isabelle sees all the images as LeDerick is speaking, as does David. LeDerick describes the African word, “nomo,” which refers to the magic of the spoken word. We need to speak it into being, and like his Aunt Kay said, as long as we say someone's name, a person who has passed, they live. He comes from strong oral traditions, his dad was a cross-country coach, and his grandfather was President of his chapter of the NAACP, and LeDerick aspires to continue those traditions, and continue their work. If he's doing his job well, you can see it, poetry doesn't say, it shows. Isabelle and David are so honored that LeDerick has been Something Shiny's first guest (upon David's insistence, and LeDerick's generous sharing of time and energy), and we are here to promote whatever LeDerick wants to promote. He mentions the Rare Gem Talent School in Kenya that supports students with disabilities, and right now they're renting an old hotel and providing education for about 120, and were able to raise funds to get through the pandemic. Now they're trying to raise money for the land they're on and to eventually create a complex that will support 500 students with dyslexia, ADHD, etc. and have a huge waitlist. Nancy was just at the International Dyslexia Conference—you can't do it on your own (for more information and how to support this amazing school, see below!)Songs we mention that help us spell words“Fresh” - Fresh 3 M.C.'s “Fresh” “Common” - De La Soul's “The Bizness” Bananas - “Hollaback Girl” by Gwen Stefani Glamorous - “Glamorous” by Fergi More info on the amazing school in Kenya:Rare Gem Talent SchoolVideo from understood.org featuring LeDerickVideo for “Until Every Barrier Falls” (WATCH THIS RIGHT NOW) More on LeDerick Horne(here's a brief bio)(here's his amazing link tree)LeDerick and Dr. Margo Izzo's book, Empowering Students with Hidden Disabilities: A Path to Pride and Success Black and Dyslexic Podcast (hosted by Winifred Winston and LeDerick Horne)Celebrating Black History and People with Disabilities - Youtube series A glimpse of LeDerick's live events - from the Nevada Student Leadership Transition Summit (NSLTS)The vision boards LeDerick talks about appear in this video at 18:45 - December 14, 2021, Humboldt County School District School Board Meeting - The Lowry High School NSLTS Team presents on their efforts, including self-directed IEPsNew Jersey Coalition for Inclusive EducationAll in for Inclusive Education DAVID'S DEFINITIONSDisproportionality: the racial or ethnic differences that exist in how students with learning differences are identified, placed, and disciplined—for example, how black and brown students with ADHD might be labeled as having Oppositional Defiant Disorder or “behavioral issues” while white students are identified as having ADHD and thus treated very differently.Griot: a West African ethnic group dating back to the 14th century that act as storytellers, mediators, royal advisors, and bards, the keepers of oral histories and stories for families and tribes. For more, check out this wikipedia entry. https://en.wikipedia.org/wiki/GriotLearning Difference (LD): Because learning disability is a crummy, inaccurate term. For example, David does not have a learning disability, he has a sitting still disability.Inclusion/Inclusive Education: This refers to the idea that all students should have an equal opportunity to learn, and relates to parts of the law and education system that attempt to achieve this by acknowledging it is more effective and socially beneficial for all students (as research and endless evidence shows) to be in classrooms and experiences together, rather than segregated into different tracks or programs. For a much more thorough description of all of the nuances around this, check out:https://en.wikipedia.org/wiki/Inclusion_(education)Individualized Education Plan (IEP): is for someone with learning or emotional needs in a classroom. An IEP is a legal contract with a school, that specifies the accommodations and modifications available for a student. IEPs are tailored for each individual student who qualifies. While it is similar to a 504 plan, or another type of plan that has recommendations that schools can follow, an IEP is more formal and structured, and increases the amount of supports a school can provide. IEPs are provided in public schools in the United States. To get an IEP, a child has to demonstrate the need for an IEP over a 504 plan, and be assessed by the school. For a big guide to IEPs, check this out. Resiliency: you're not going to shatter, whatever happens, it's not going to destroy you. Transmuting internalization - the Quantum Leap of psychology: going back and righting a wrong that happened to you, for somebody else. This is a term David borrows from Kohut's Self-Psychology, and the idea that you can develop the thin inside you that you were missing when you were growing up.Trauma - An event, injury, or situation that overwhelms your capacity to cope and leaves you in a state of feeling even momentarily collapsed—-you can't fight, or flee, or freeze and wait for more data anymore, you actually feel like you are about to die. Folks with ADHD can be confused for each other, and are often interrelated—more on this topic to come in future episodes!Trauma Mastery - Healing from your own injury by re-visiting or recreating situations with the hope that things will play out differently this time—eg. The person who becomes a therapist and helps survivors of trauma because they needed someone to listen and be there for them in their own time of pain.Trauma Reenactment - finding yourself drawn to and repeating cycles around the initial injury that occurred (e.g. you find yourself in relationships that wound you in the same way your initial trauma happened)—this can be unconscious, and dangerous when it happens without awareness and help, because you keep getting re-exposed to traumatic things again and again.-----Cover Art by: Sol VázquezTechnical Support by: Bobby Richards—————
Welcome to episode 44! Today I'm sharing a recent New Perspectives Membership call with you, where Rick Kohut joined us as a guest speaker! During this member's-only call, Rick shared so much incredible and valuable information around food - everything from the importance of knowing where your food comes from to how to minimize conflicts around food in general. You may want to take notes during this one! Join New Perspectives Membership! Experience life with less fear and panic regarding your health concerns and symptoms, gain a renewed appreciation for your body's innate wisdom, and an unshakable trust in Nature's Laws. https://tanyaverquin.ca/memberships/new-perspectives/ Find Rick: https://www.healthstreet.ca/ https://www.kohutfarm.ca/ Connect with me: tanya@tanyaverquin.ca instagram.com/pixelatedperspectivespodcast
David and Isabelle continue their conversation with poet, speaker, and activist for people with disabilities, LeDerick Horne—from how the LD/ADHD community often generates it's knowledge base from peers and social media, to losing resources by ignoring people, to recognizing that the suffering is real and the urge to help someone not suffer as you did has a big fancy psychology term for it (transmuting internalization, PHEW). Go further into the depth of how you're not alone and also hear one of LeDerick's incredible poems - Dare to Dream. (Part III of a series)----LeDerick talks about a multimedia approached to activism, making a Youtube series on Celebrating Black History & People with Disabilities, and starting up a TikTok account (see links below)—and the importance of recognizing that for most people with disabilities, the information is transmitted peer to peer, rather than parent to child. At most of his events, he notices that parents are sitting on the sidelines, and the kids are interacting about the best apps to use for accommodations—we're not going to read the book, access the study, but we can listen to a podcast. David jumps in about a shared oral history and the access to that oral history is geography—and now podcasts can overcome that. Given the history of segregation, and New Jersey being the 6th most segregated state in the nation, and living in a blue color, primarily black and Latinx community—you need to be able to cross over to other parts of town and communities to access information. Segregation cuts us off from resources, from information, and the power of having these conversations for everyone to be able to find out in the world. The power of sports or other activities to bring people together—he was able to meet folks that were not in special ed because he ran track and cross country. If he had just stayed in those classrooms, he wouldn't have had access to them professionally. LeDerick was invited to Harvard, the UN, the White House—connecting to others with a shared passion and from all walks of life. LD/ADHD crosses all lines, and it's important to recognize, and there is privilege that comes in there and makes the experience of being LD/ADHD so different. David names—when we're talking about people in this world, whether the color of their skin, their neurodivergence, their gender—there isn't one way to receive a message in this world. And there's no way for a message to become universal, and it stretches, and we need to have these conversations more often, not just the right way. It's important to honor choice and agency—and with LD and ADHD, we're looking at exceptional people that are being missed. There are people who could be potentially curing major diseases, changing the world, we're losing resources by ignoring people. LeDerick went to school with some folks who he looked up to intellectually, artistically, and who were in the same classrooms as him—and whether it was resources at home, luck—the story ended very differently. The three of us—LeDerick, David, and Isabelle—we're the survivors, we're the ones who made. As he takes his last breath, LeDerick wants to know he's made the world a better place, so no one has to go through the same sort of suffering. David drops the transmuting internalization—it's the quantum leap of psychology, you don't want others to suffer as you do and you go back and try to the right the wrong that was done to you, for someone else. David doesn't want people to suffer, but he wants people to suffer (not as a jerk)—but he is what he is because of what he suffered. But what are the right ways to suffer? There's a lot of needless suffering. There's a lot of bad returns on investment, so being able to right these wrongs, and wanting to correct something that's wrong in the world, they can feel it, because they can tell that you're not correcting them. This makes Isabelle thing of trauma mastery, and how we can be unconsciously drawn to scenarios and relationships that reenact the trauma we suffered because we want to rewrite the script this time. And also the difference between pain and suffering, and there's some disease (leprosy or Hansen's disease) that numbs your ability to tell you've had an injury, so you keep going and keep going and this leads to infections and loss of fingers, etc. (See below)—the idea of pain as a messenger, as something that indicates you need to notice something so you can change it, versus suffering as feeling isolated and stuck in that pain and aloneness. Trauma work as requiring community, and connection and vulnerability, and how trauma can't be healed in isolation. David loses his thought around how this connects to inclusion, and the three pause for an insert, and then he thinks of what he wanted to say! He pulls up the example of PTSD rates and how countries that are facing war, like Israel, might be assumed to have the highest rates of PTSD—and yet Israel has the lowest rate, which relates to how when people return from being in military service, everyone gets it (because it's required and thus more commonly experienced). David is not listening to LeDerick and Isabelle's story trying to figure out what's wrong with them, they're just listening and sharing and gaining that common experience. Trauma reenactments can be scary, and around inclusion, everyone can have an accommodation and individualized education. Who wouldn't benefit from an individualized education plan? What if everyone had it and it's not a weird thing. LeDerick talks about his friend Mark McLendon. He had an emotional breakdown in his early 20s, leaves a family event and lays down in the car, going through it. Through the glass, his friend Mark knocks, and he said “you know, I don't exactly know what you're going through right now, and I know in this world that has a lot of suffering, but none of us has to suffer alone.” There's the idea of the dignity of failure, and there's a desire to wrap kids in a protective bubbles, and it's not treating you like a human being, we fall, we get our knees scraped, mistakes happen-you don't want to be so fragile that when that happens you break. It's important to go through the experience with words. David asks LeDerick if he could gift us with some poetry, and he graciously does, sharing the poem he wrote to high school kids: Dare to Dream. It's incredible, please listen to it now! It speaks to 10 year old Isabelle, and David was sort of expecting poetry (womp womp) and instead he saw him grabbing his hand and getting him out, and then wow. He tried for 8 years to record LeDerick speaking this poem to no avail. LeDerick remembered going to a Dare to Dream conference out of the New Jersey Office of Special Education and Bob Haugh, was encouraging him to put to words the specific experience and communication to the kids at the conference, witnessing these panels--and like so many things, the specific became more general and resonant. More on LeDerick Horne(here's a brief bio)(here's his amazing link tree)LeDerick and Dr. Margo Izzo's book, Empowering Students with Hidden Disabilities: A Path to Pride and Success Black and Dyslexic Podcast (hosted by Winifred Winston and LeDerick Horne)Celebrating Black History and People with Disabilities - Youtube series A glimpse of LeDerick's live events - from the Nevada Student Leadership Transition Summit (NSLTS)The vision boards LeDerick talks about appear in this video at 18:45 - December 14, 2021, Humboldt County School District School Board Meeting - The Lowry High School NSLTS Team presents on their efforts, including self-directed IEPsNew Jersey Coalition for Inclusive EducationAll in for Inclusive Education Random Things We Mentioned: Cheers - It's a sitcom about a bar with the theme song: “sometimes you wanna go, where everybody knows your name, and they're always glad you came…”Leprosy/Hansen's disease as a disease that numbs your pain and thus leads to loss of fingers, etc.Israel having the lowest rate of PTSDArticle from Vanity Fair: “Despite decades of intermittent war, the Israel Defense Forces have a PTSD rate as low as 1 percent. Two of the foremost reasons have to do with national military service and the proximity of the combat—the war is virtually on their doorstep. “Being in the military is something that most people have done,” I was told by Dr. Arieh Shalev, who has devoted the last 20 years to studying PTSD….According to Shalev, the closer the public is to the actual combat, the better the war will be understood and the less difficulty soldiers will have when they come home. The Israelis are benefiting from what could be called the shared public meaning of a war. Such public meaning—which would often occur in more communal, tribal societies—seems to help soldiers even in a fully modern society such as Israel. It is probably not generated by empty, reflexive phrases—such as “Thank you for your service”—that many Americans feel compelled to offer soldiers and vets. If anything, those comments only serve to underline the enormous chasm between military and civilian society in this country.”DAVID'S DEFINITIONSDisproportionality: the racial or ethnic differences that exist in how students with learning differences are identified, placed, and disciplined—for example, how black and brown students with ADHD might be labeled as having Oppositional Defiant Disorder or “behavioral issues” while white students are identified as having ADHD and thus treated very differently.Learning Difference (LD): Because learning disability is a crummy, inaccurate term. For example, David does not have a learning disability, he has a sitting still disability.Inclusion/Inclusive Education: This refers to the idea that all students should have an equal opportunity to learn, and relates to parts of the law and education system that attempt to achieve this by acknowledging it is more effective and socially beneficial for all students (as research and endless evidence shows) to be in classrooms and experiences together, rather than segregated into different tracks or programs. For a much more thorough description of all of the nuances around this, check out:https://en.wikipedia.org/wiki/Inclusion_(education)Individualized Education Plan (IEP): is for someone with learning or emotional needs in a classroom. An IEP is a legal contract with a school, that specifies the accommodations and modifications available for a student. IEPs are tailored for each individual student who qualifies. While it is similar to a 504 plan, or another type of plan that has recommendations that schools can follow, an IEP is more formal and structured, and increases the amount of supports a school can provide. IEPs are provided in public schools in the United States. To get an IEP, a child has to demonstrate the need for an IEP over a 504 plan, and be assessed by the school. For a big guide to IEPs, check this out. Resiliency: you're not going to shatter, whatever happens, it's not going to destroy you. Transmuting internalization - the Quantum Leap of psychology: going back and righting a wrong that happened to you, for somebody else. This is a term David borrows from Kohut's Self-Psychology, and the idea that you can develop the thin inside you that you were missing when you were growing up.Trauma - An event, injury, or situation that overwhelms your capacity to cope and leaves you in a state of feeling even momentarily collapsed—-you can't fight, or flee, or freeze and wait for more data anymore, you actually feel like you are about to die. Folks with ADHD can be confused for each other, and are often interrelated—more on this topic to come in future episodes!Trauma Mastery - Healing from your own injury by re-visiting or recreating situations with the hope that things will play out differently this time—eg. The person who becomes a therapist and helps survivors of trauma because they needed someone to listen and be there for them in their own time of pain.Trauma Reenactment - finding yourself drawn to and repeating cycles around the initial injury that occurred (e.g. you find yourself in relationships that wound you in the same way your initial trauma happened)—this can be unconscious, and dangerous when it happens without awareness and help, because you keep getting re-exposed to traumatic things again and again.-----Cover Art by: Sol VázquezTechnical Support by: Bobby Richards—————
*A note to listeners: Today's episode deals with sexual violence inflicted on Indigenous minors and won't be suitable for all listeners.In 2006, RCMP Const. Joseph Kohut kicked down the door to his ex's home in Prince George, B.C., and left with certain belongings. His ex said that one of the things Kohut took was a videotape showing him sexually harassing an underage Indigenous girl. Kohut had already been investigated for sexual misconduct after a local judge pled guilty to sexually assaulting several Indigenous minors. Kohut's ex, also a Mountie, reported the alleged theft of evidence. So what happened next? Reporter Jessica McDiarmid tells the story of 16-years of entropy and indifference within the RCMP. Host: Jesse BrownCredits: Tristan Capacchione (Audio Editor and Technical Producer)Guest: Jessica McDiarmid Further reading: Toronto Star investigation, by Jessica McDiarmid Sponsors: Oxio, Rakuten, Freshbooks If you value this podcast, Support us! You'll get premium access to all our shows ad free, including early releases and bonus content. You'll also get our exclusive newsletter, discounts on merch at our store, tickets to our live and virtual events, and more than anything, you'll be a part of the solution to Canada's journalism crisis, you'll be keeping our work free and accessible to everybody. You can listen ad-free on Amazon Music—included with Prime. Hosted on Acast. See acast.com/privacy for more information.
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Andrzej Kohut, autor książki "Ameryka. Dom podzielony" o zmianach, które zaszły w USA w ostatnich latach. Jeśli nie chcesz podzielonej Polski, masz dość walki dwóch plemion, wesprzyj Układ Otwarty. Tu rozmawiamy ponad podziałami: https://patronite.pl/igorjanke
8/31/22 - Cathy Kohut Resources In Search And Rescue Inc by The Lisa Wexler Show
Bill Kohut joins us for the fourth episode of the Cisco Leadership Podcast. As the Senior Vice President of US Commercial he discusses his journey, leading through a pandemic, highlighting family, and striking for great balance. He touches on the foundation of his leadership style, key inspirations, habits, the importance of taking risks and having great sponsors in the workplace.
In this episode, Dr Carveth discusses the analytic cure as conceived by the different psychoanalytic schools of thought: Freud, Klein, Bion, Lacan, Winnicott, Kohut, et al.
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