Podcasts about g word

Daisy Bow thinks the *G-Word* is, well, complicated. A Part-Time Assistant Professor at The New School, FIT, and Marymount Manhattan whose work centers on French food and identity, perfume, and (French) language instruction, as well as an instructor at the Fragrance Alliance, Daisy interrogates fragrance from a critical, cultural, and academic lens. Today we discuss the colonial roots behind gourmands, the case for the 'basic bitch' perfume, why reformulations are your friends, defining 'sexy' scents, and the notion of cultural appropriation in the age of globalization and transculturation.FRAGS MENTIONED:Celine: Dans Paris, Saint Germain des Pres;  Matiere Premiere Parisian Musc, ELOREA Bae Frais, Caron, Gap Dream, CK be, Dior Dune, Chanel No. 5, Debbie Gibson Electric Youth, Mugler: Angel, Alien; EM Molecule 01, Marc Jacobs EDP, Michael Kors, Frederic Malle Outrageous, d'Annam Pho Breakfast, ELOREA, J Scent, Arquiste, Ella K, BBW Warm Vanilla Sugar, Demeter: Jelly Donut, Baby Powder; Pure Instinct, Frederic Malle Saint des SaintsFOLLOW DAISY: @je_suis_daisybTAKE HER COURSE: fragrancealliancenetwork.com/products/perfume-history-y2kBOOK A SCENT STYLING SESSION WITH ME: stele.nyc/emma

Is geoengineering the answer to the climate crisis? Or is it too dangerous to even discuss? It's been theoretical so far, but now, one startup says their technology could soon shield the Earth from the sun. Guest: Robinson Meyer, climate journalist and founding executive editor of Heatmap News. For show transcripts, go to ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠vox.com/unxtranscripts⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ For more, go to ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠vox.com/unexplainable⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ And please email us! ⁠⁠⁠⁠⁠unexplainable@vox.com⁠⁠⁠⁠⁠ We read every email. Support Unexplainable (and get ad-free episodes) by becoming a Vox Member today: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠vox.com/members⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ Thank you! Learn more about your ad choices. Visit podcastchoices.com/adchoices

Let's get spycember started with From Russia With Love! Tune in next week for more smooth-brain John content.Leave us a 5-star review and we'll lincoln log all our butts together.Send us an email: goodweirdgreat@gmail.comFollow our TikTok: https://www.tiktok.com/@goodweirdgreat

Google kept collecting sensor data even after bricking Nest thermostats, FreeBSD’s container support gets serious, and where to find cheap (or even dirt cheap) used hardware. Plugs Support us on patreon and get an ad-free RSS feed with early episodes sometimes How to Set Up a Highly Available ZFS Pool Using Mirroring and iSCSI December Webinar: The 12 Days of ZFS: Tips, Tricks, and Treats News/discussion Google is collecting troves of data from downgraded Nest thermostats FreeBSD Officially Supported in OCI Runtime Specification v1.3 Free consulting We were asked about where to find cheap (or even dirt cheap) used hardware. Tailscale Tailscale is an easy to deploy, zero-config, no-fuss VPN that allows you to build simple networks across complex infrastructure. Go to tailscale.com/25a and try Tailscale out for free for up to 100 devices and 3 users, with no credit card required. Use code LATENIGHTLINUX for three free months of any Tailscale paid plan. See our contact page for ways to get in touch.

Google kept collecting sensor data even after bricking Nest thermostats, FreeBSD’s container support gets serious, and where to find cheap (or even dirt cheap) used hardware. Plugs Support us on patreon and get an ad-free RSS feed with early episodes sometimes How to Set Up a Highly Available ZFS Pool Using Mirroring and iSCSI December Webinar: The 12 Days of ZFS: Tips, Tricks, and Treats News/discussion Google is collecting troves of data from downgraded Nest thermostats FreeBSD Officially Supported in OCI Runtime Specification v1.3 Free consulting We were asked about where to find cheap (or even dirt cheap) used hardware. Tailscale Tailscale is an easy to deploy, zero-config, no-fuss VPN that allows you to build simple networks across complex infrastructure. Go to tailscale.com/25a and try Tailscale out for free for up to 100 devices and 3 users, with no credit card required. Use code LATENIGHTLINUX for three free months of any Tailscale paid plan. See our contact page for ways to get in touch.

Let's discuss the dreaded G-word – geriatrics – and clear up common misconceptions about that medical specialty and why it's important for healthy aging.For many, it conjures images of decline, disease, and – well – dying. But what if we take the view that geriatricians are experts in body and mind maintenance for late-model humans? That's the focus of this episode of our monthly series, NEXT AGE, where we're reframing aging.The goal of modern geriatrics is to help our health span match our lifespan as more of us are living longer. We hear from experts in the care and maintenance of our aging bodies and learn why more people are actively seeking geriatric care early in their latter years.There's a growing effort to recruit and train more professionals in geriatrics and increase all of our appreciation and access to these specialists.Our show is made possible, in part, by BlueCross BlueShield of Tennessee and our series on aging is made possible by a grant from The West End Home Foundation — enriching the lives of older adults though grantmaking, advocacy and community collaboration.This episode was produced by LaTonya Turner.Guests: Jean Gauld-Jaeger, retiree & patient of geriatrician, https://artbyjaeger.com/ Katina Beard | CEO, Matthew Walker Comprehensive Health Center S.A.L.T. Deborah Lee, PhD, Director & Co-Founder, MTSU Positive Aging Consortium James Powers, M.D., geriatrician/researcher/professor, VUMC Division of Geriatric Medicine Stacy D. Smith, M.D., Assistant Professor of Medicine, VUMC Division of Geriatric Medicine

The emissions targets are out, and we need to get it right. Emerald and Tom go over the news that the United Nations (sort of) released a report declaring Israel’s action in Palestine a genocide (12:20). So that’s all sorted then? Next up, Susssssan Ley gave a speech this week about breaking the “growing expectation that the government will pay for everything.” (34:31) With no repercussions for robodebt, it’s a bold return to an old favourite way to make your stupid uncle mad. Finally, a call to action (1:05:52). Video version - https://youtu.be/KjftKa29X3k ---------- Just released on Patreon - “Targeting emission reductions targets” The show can only exist because of our wonderful Patreon subscriber’s support. Subscribe for $3/month to get access to our fortnightly subscriber-only full episode, and unlock our complete library of over SEVENTY-FIVE past bonus episodes. https://www.patreon.com/SeriousDangerAU ---------- “A Night Of Humanity for Palestine” - Thursday 16 Oct at the Enmore Theatre - https://premier.ticketek.com.au/shows/show.aspx?sh=NOHPAL25 Just announced guest - Wil Anderson!Serious Danger 200th show live at Comedy Republic in Melbourne on Sat Nov 1st at 4pm, tickets at - https://www.comedyrepublic.com.au/event/38:517/38:1803/ Produced by Michael Griffin https://www.instagram.com/mikeskillz Listen to Floodcast for more left green discussion about Aussie politics produced by The Griff -https://linktr.ee/floodcastau Follow us on https://twitter.com/SeriousDangerAU https://www.instagram.com/seriousdangerau https://www.tiktok.com/@seriousdangerauSupport the show: http://patreon.com/seriousdangerauSee omnystudio.com/listener for privacy information.

EU caves to Trump in terrible trade deal.Even Israeli human rights organizations are now using the "G-word".There's a push to get the US government to investigate the death of Gonzalo Lira in Ukraine. All that and much more on today's show! We're LIVE Mon, Wed, and Friday at 3pm ET. Unredacted Tonight has joined the first ever worker-owned anti-capitalist streaming platform - MeansTV! Support my show AND get tons of awesome content by going to means dot tv and using promo code "LEE". You'll get 20% off and a free trial week.My comedy news show Unredacted Tonight airs every Thursday at 7pm ET/ 4pm PT. My livestreams are on Mon and Fri at 3pm ET/ Noon PT and Wednesday at 8pm ET/ 5pm PT. I am one of the most censored comedians in America. Thanks for the support!

The Israel apologists have lost the argument. They might not know it yet, but they have. Public sentiment has turned irreversibly against them as people's eyes are opened to the truth of what's happening in Gaza, and more and more propagandists are choosing to rescue what's left of their tattered credibility instead of going down with the sinking ship. Reading by Tim Foley.

A commentary and discussion on the Just for Today: Daily Meditations for Recovering Addicts. Contact Information: 919-675-1058 or facebook.com/groups/theanonpodcast

Sign up for our weekly newsletter here! In this episode of the "Fueling Creativity in Education Podcast," hosts Cyndi Burnett and Matthew Worwood engage in a thought-provoking discussion with Dr. Austina De Bonte, an expert in gifted education. Austina who transitioned from a successful career in technology at Microsoft to pursue her passion for gifted education, shares her multifaceted experiences and research. She highlights the challenges and strategies associated with equitable identification of gifted students, particularly focusing on twice exceptional students—those who are both gifted and have a learning difference or disability. Dr. De Bonte emphasizes the importance of using methods such as local norms and or-based rules in testing to provide a more inclusive and accurate identification process. She also addresses the stereotypes and assumptions associated with giftedness and the need for a broader understanding of the complexities involved. Throughout the episode, Dr. De Bonte explores the significance of re-evaluating the terminology used in gifted education, supporting the shift from "gifted" to "highly capable" to mitigate misconceptions. Additionally, she offers valuable insights for parents navigating the educational system with twice exceptional children, encouraging a deeper exploration of underlying issues that may affect a child's performance. Listeners will gain an understanding of how Austina's approach intertwines creative educational experiences with systematic solutions, ultimately advocating for a more comprehensive and equitable gifted education landscape. The episode provides valuable perspectives for educators, parents, and administrators seeking to enhance their understanding of gifted education and foster creativity in the classroom. About Dr. Austina De Bonte: Dr. Austina De Bonte is President of WA Coalition for Gifted Education, Past President of NW Gifted Child Association, Advisor to The G Word documentary, and a consultant at Smart is not Easy. She specializes in helping families get to the root cause(s) of their kids' twice exceptional challenges. Her signature style combines her experience as a parent of grown 2e students and family consultant along with synthesized research, current district practices across Washington State, and cutting-edge neuroscience. She has a Masters degree from MIT (1998), and an Ed.D. from Bridges Graduate School (2024), where her dissertation was titled “Beyond Universal Screening: Practices and Attitudes that Promote Equity in an Accelerated Program.” Learn more about her at Smart is Not Easy. Eager to bring more creativity into your school district? Check out our sponsor Curiosity2Create.org and join their Creativity Network for Educators at Curiosity2Connect! Check out our Podcast Website to dive deeper into Creativity in Education! For more information on Creativity in Education, check out: Matt's Website: Worwood Classroom Cyndi's Website: Creativity and Education    

On today's poddy, we touch on a little more filth following on from yesterday before brainstorming our goals for 2025. Follow The Big Show on Instagram: https://www.instagram.com/haurakibigshow Subscribe to the podcast now on iHeartRadio, YouTube, or wherever you get your podcasts! Featuring Jason Hoyte, Mike Minogue, and Keyzie, "The Big Show" drive you home weekdays from 4pm on Radio Hauraki. Providing a hilarious escape from reality for those ‘backbone’ New Zealanders with plenty of laughs and out-the-gate yarns. Download the full podcast here: iHeartRadio: www.iheart.com/podcast/1049-the-hauraki-big-show-71532051/?follow=true Apple: https://podcasts.apple.com/us/podcast/the-hauraki-big-show/id1531952388 Spotify: https://open.spotify.com/show/20OF8YadmJmvzWa7TGRnDISee omnystudio.com/listener for privacy information.

In this News Brief, we talk to Joyce Ajlouny of the American Friends Service Committee, discuss a recent episode where the New York Times refused to run an AFSC pro-ceasefire ad with the word "genocide" in it, and detail the broader battle within liberalism over labeling the US and Israel's "war" as genocide––and what it would entail if our media did.

Comedian and all-around expert Adam Conover (Adam Ruins Everything,  Factually!) made a series about the government with Barack Obama called “T G Word.” How does he feel about its reliabilty? Why are people suspicious of it?

Are you struggling with bloating, constipation, diarrhea, fatigue, gas, or stomach pain on a regular basis but not sure why? Well I may have your answer!!! Glad you're here friend!!!  Jennifer   P.S. THANKFUL Sale going on!!!⬇️⬇️⬇️ The New Year will be here before you know it! So I've put together the Healthy Habits Blueprint course. to help you get started on those New Year's Goals! There's only 3 main modules in this course because it's for busy mom's just like you!!!.  In this course, you will evaluate your mindset, get a game plan for overcoming obstacles and distractions.  You will identify and replace your bad habits.  THEN you will build a sustainable healthy habit plan.  That way you can have a healthier gut, lose weight, have more energy, AND get rid of brain fog!!! Let's get started on a healthier gut and a better life today so you can be the mom, wife, sister, cousin, aunt, or friend you have always wanted to be! Go to jennifercoble.com/course right now and check out my health habits blueprint course!   

WATCH the video on YouTube by clicking the RED button above.LISTEN to audio only via the Substack player by clicking the GREY button above.STREAM audio only on Apple Podcasts, Spotify, or your favorite podcast player app.DOWNLOAD a pdf of the slide deck by clicking the blue Download button below.Amidst the geopolitical and macro turmoil, we take a step back this week to turn back to how companies can think about outperformance through all the volatility. One can't be frozen and simply wait for a calmer or better time to materialize. No one should be sitting around waiting for an easy bull market to emerge. Long-time Super-Spiked subscribers will know that we are long-running advocates for companies focusing on profitability and a fortress balance sheet. This week we will start the process of spending some time on the "G" word: growth. Growth became a 4-letter word for investors after the surge in CAPEX during the Super-Spike era and subsequent US shale boom led to profitless growth--something we have spent a lot of time discussing in prior posts.And let us be clear, profits and balance sheet health remain the priority. That said, there is no doubt investors will always side with companies that can grow versus those that cannot grow at a given level of profitability and balance sheet strength. The trick is to hit the trifecta: growth, returns, and balance sheet strength. Moreover, for especially the upstream portion of the industry where asset life is finite--oil and gas fields naturally deplete--it is critical to adequately reinvest back in the business if a company is to persist as a going concern.

Blurb: Comedian Sierra Katow talks about her new special, being so insecure she conquers everything she sets out to do, Asian comics, hitting the comedy clubs with your dad waiting in the car, and throwing your Harvard Education away on jokes, when it's right to start a family, and hustling to prove your not a typical type-A person. Bio: Sierra is a standup comic, writer, and actor who recently released her debut comedy special, Funt, with Comedy Dynamics available on Amazon Prime, AppleTV, YouTube, and more. She can be seen in the upcoming PBS series Roots of Comedy with Jesus Trejo and plays Evangeline on Mindy Kaling's The Sex Lives of College Girls on Max. Previously, she was a part of the main cast of The G Word with Adam Conover on Netflix, voiced characters in Disney's Raya and the Last Dragon, and performed standup on Last Comic Standing (NBC), Last Call with Carson Daly (NBC), Just For Laughs Digital, FOX, and MTV. She was a writer/co-producer for the upcoming Comedy Central series Golden Axe and has written for Exploding Kittens (coming soon to Netflix), Close Enough (HBOMax), Earth To Ned (Disney+), Eureka! (Disney+), and more.

Stephen Brooks has over 25 years of experience working on the creation of thrivingecological communities, beginning in 1995 with The Punta Mona Center forRegenerative Design and Botanical Studies, which has become a world leader intropical permaculture and an extensive botanical collection of useful plants. Tens ofthousands of students have visited and have been inspired by this rotatingcommunity of change-makers. In 2006 La Ecovilla was founded as a world model forsustainable living, made up of 45 families from 22 countries. Ecovilla's roads aremade from recycled plastic, the septic is treated by one of Costa Rica's largestmethane digesters and large communal gardens and orchards feed the residents.In 2008, up the street from La Ecovilla, Stephen co-founded Tacotal which is co-owned by 33 families and is 70 acres on the same river as La Ecovilla. His most recent addition is Alegria Village which neighbors La Ecovilla and is 170 acres and has sold 140 lots to neighbors from 32 countries!Stephen co-founded the annual Envision Festival, an educational and consciouscelebration on the Pacific Coast of Costa Rica featuring music, workshops, artinstallations and a host of activities designed to build community and inspirationaround creating a sustainable world. Nearly 10,000 people attended the EnvisionFestival in 2024.A self-trained ethnobotanist, specialist in exotic fruit trees and permacultureeducation, Stephen has taught over 40 Permaculture Design Courses in Costa Rica,Mexico, Guatemala, and the US and last year he co-founded Ecoversity which isteaching permaculture and other Earth skills online. He currently does consultationsand permaculture installations on many scales, from working with Hollywoodcelebrities to resorts and wellness centers to community development projects tosmall family farms. Stephen has become the go-to in Costa Rica when people wantto increase their biodiversity, nurture their soil and design the self-sustaining projectof their dreams.A passionate speaker and educator, Stephen has given numerous talks and lecturesover the years, including several TedX talks, and appeared as a host andcorrespondent on multiple TV shows including Edible Adventures for the TravelChannel, G Word for Discovery's Planet Green, Save My Planet for ABC's Livewell HDand most recently was featured on Down to Earth w/ Zac Efron on Netflix!Stephen BrooksIG: stephenrbrooksPROJECTSIG @PUNTAMONAIG @ENVISIONFESTIVAL@PUNTAMONAENVISIONIG @ALEGRIAVILLAGEALEGRIAIG @ECOVERSITY ❣️ THE BEST COMPLIMENT you could give us is to share this video with someone you care about ❣️ ⬇️ 22 WAYS TO PLEASURE & OXYTOCIN CLASS ⬇️ Use coupon code: NEWMAGIC at check out to get it for $111 https://motherdaughterduo.podia.com/

On episode 234, Emily Kircher-Morris talks with Austina De Bonte about auditory processing differences. They discuss how these differences can often be mistaken for attention issues or social difficulties, and what it all means for everyday life. Dr. De Bonte shares some methodologies used for testing, accommodations that are available, and ground-breaking auditory therapies that have been found to help those dealing with auditory processing challenges. Takeaways Auditory processing differences can have a significant impact on how individuals experience the world and react to various situations. Processing differences can often mimic other traits, such as attention issues or difficulties with social relationships. Individuals with auditory processing differences may try to hide or compensate for their difficulties, which can be exhausting and impact their well-being. The Abled Kids Foundation specializes in auditory processing disorder and offers unique approaches to assessment and support. An ear filter device can improve word recognition by altering the timing between the ears. Low gain hearing aids and auditory therapies may provide some benefit, but their effectiveness is uncertain. Misophonia, a sensitivity to certain sounds, does not have many effective strategies for treatment. Accommodations such as preferential seating and FM systems in classrooms can help individuals with auditory processing differences. If you are a clinician and you are looking for accredited continuing education specific to neurodivergent clients, you should check out the Therapist Hub. You can join as a founding member and get 15% off the lifetime of your membership with the coupon code HubFM15. If you weren't able to attend the free course, Foundations of Neurodiversity-Affirming Therapy, you can still take the course as a self-study here. This episode is brought to you by the Gifted Learning Lab, which offers resources and coaching for parents who want to feel more confident raising their intense or sensitive gifted and twice-exceptional kids and teens. Dr. Austina De Bonte is a consultant at Smart is Not Easy, specializing in helping families get to the root cause(s) of their kids' twice exceptional challenges. She also works with school district teams to improve equitable identification and service models. She is President of the WA Coalition for Gifted Education, Past President of NW Gifted Child Association, and an advisor to The G Word documentary. Dr. De Bonte's impressive credentials and experience also include being a certified SENG Model Parent Group facilitator, making the list of People to Watch by Variations 2e (2020), and being a recipient of the NAGC Carolyn Callahan Doctoral Student Award (2023), the WAETAG Advocacy Award (2019), and three PTA Outstanding Advocate awards. Augustina has a Masters degree from MIT (1998), and an Ed.D. from Bridges Graduate School (2024), where her dissertation was titled “Beyond Universal Screening: Practices and Attitudes that Support Equity in an Accelerated Elementary Program.” BACKGROUND READING Austina De Bonte's website Facebook

A commentary and discussion on the Just for Today: Daily Meditations for Recovering Addicts. Contact Information: 919-675-1058 or facebook.com/groups/theanonpodcast

Independent filmmaker Marc Smolowitz (13th Gen) talks about his upcoming film "The G Word", which tackles issues related to giftedness, equity, and social justice for a broad audience. Learn more about your ad choices. Visit megaphone.fm/adchoices

Holocaust survivor and important C-19 dissident Vera Sharav comes out to say that, sadly, she must call out a “genocide” in Gaza, and why she cannot stay silent. She and Trish discuss what lead up to her decision to speak, and the similarities between the messaging around Israel/Gaza and C 19. And Trish unpacks the absurdities of the latest Munk debate. Follow Trish on X @woodreporting Website: www.trishwoodpodcast.com  Shop: https://www.trishwoodpodcast.com/shop 

We are talking about a really important topic this week: grief. Grief is shocking in divorce. My guest Barri Leiner Grant, is a grief specialist and educator who joins me to help us understand how to process the grief we feel over an ended marriage. Barri divorced after a 17-year marriage and helps name grief and grieving for others who have experienced losing an imagined future. Putting the G-word in the D-word!   Featured topics: Why do we grieve a divorce? (2:16) Shame is a complicating factor in grief and divorce (8:49) The root cause of the shame and how to move through it (17:00) If we don't look at our grief head-on, it will grow like a weed Grief tending: what it is and how you can tend to your grief (21:18) Exploring who you are now and who you want to be (28:35) Learn more about Barri Leiner Grant: Barri Leiner Grant is a grief specialist and educator and the founder of The Memory Circle -- a place and space she created for those who have experienced both death and non-death losses. Her work has been featured in The Washington Post, Psychology Today, and Maria Shriver's Sunday paper, among many other media outlets. She is an author who shares her personal experiences of loss widely. She divorced after a 17-year marriage and helps name grief and grieving for others who have experienced losing a future imagined. Putting the G-word in the D-word!   Resources & Links: Kate's book “The D Word Phoenix Rising: A Divorce Empowerment Collective Barri's website Barri on Instagram The Artist's Way Episode link: https://kateanthony.com/podcast/episode-266-putting-the-g-word-in-the-d-word-with-barri-leiner-grant TODAY'S EPISODE IS SPONSORED BY: SOBERLINK Surviving divorce is one thing, but surviving divorce with a co-parent who abuses alcohol is a whole different ball game. Soberlink is a high-tech breathalyzer system that sends you instant results of a co-parent's alcohol levels. When your co-parent tests, their identity is automatically confirmed with facial recognition, and tamper sensors ensure no cheating has occurred. You then get instant proof that your kids are safe in their care. Court admissibility in all 50 states Facial recognition Tamper detection Easy-to-read Advanced Reporting™ Help your family thrive in the new year. Visit www.soberlink.com/dsg to learn more and get $50 off your device. DISCLAIMER: THE COMMENTARY AND OPINIONS AVAILABLE ON THIS PODCAST ARE FOR INFORMATIONAL AND ENTERTAINMENT PURPOSES ONLY AND NOT FOR THE PURPOSE OF PROVIDING LEGAL OR PSYCHOLOGICAL ADVICE. YOU SHOULD CONTACT AN ATTORNEY, COACH, OR THERAPIST IN YOUR STATE TO OBTAIN ADVICE WITH RESPECT TO ANY PARTICULAR ISSUE OR PROBLEM.

We are talking about a really important topic this week: grief. Grief is shocking in divorce. My guest Barri Leiner Grant, is a grief specialist and educator who joins me to help us understand how to process the grief we feel over an ended marriage. Barri divorced after a 17-year marriage and helps name grief and grieving for others who have experienced losing an imagined future. Putting the G-word in the D-word!   Featured topics: Why do we grieve a divorce? (2:16) Shame is a complicating factor in grief and divorce (8:49) The root cause of the shame and how to move through it (17:00) If we don't look at our grief head-on, it will grow like a weed Grief tending: what it is and how you can tend to your grief (21:18) Exploring who you are now and who you want to be (28:35) Learn more about Barri Leiner Grant: Barri Leiner Grant is a grief specialist and educator and the founder of The Memory Circle -- a place and space she created for those who have experienced both death and non-death losses. Her work has been featured in The Washington Post, Psychology Today, and Maria Shriver's Sunday paper, among many other media outlets. She is an author who shares her personal experiences of loss widely. She divorced after a 17-year marriage and helps name grief and grieving for others who have experienced losing a future imagined. Putting the G-word in the D-word!   Resources & Links: Kate's book “The D Word Phoenix Rising: A Divorce Empowerment Collective Barri's website Barri on Instagram The Artist's Way Episode link: https://kateanthony.com/podcast/episode-266-putting-the-g-word-in-the-d-word-with-barri-leiner-grant TODAY'S EPISODE IS SPONSORED BY: SOBERLINK Surviving divorce is one thing, but surviving divorce with a co-parent who abuses alcohol is a whole different ball game. Soberlink is a high-tech breathalyzer system that sends you instant results of a co-parent's alcohol levels. When your co-parent tests, their identity is automatically confirmed with facial recognition, and tamper sensors ensure no cheating has occurred. You then get instant proof that your kids are safe in their care. Court admissibility in all 50 states Facial recognition Tamper detection Easy-to-read Advanced Reporting™ Help your family thrive in the new year. Visit www.soberlink.com/dsg to learn more and get $50 off your device. DISCLAIMER: THE COMMENTARY AND OPINIONS AVAILABLE ON THIS PODCAST ARE FOR INFORMATIONAL AND ENTERTAINMENT PURPOSES ONLY AND NOT FOR THE PURPOSE OF PROVIDING LEGAL OR PSYCHOLOGICAL ADVICE. YOU SHOULD CONTACT AN ATTORNEY, COACH, OR THERAPIST IN YOUR STATE TO OBTAIN ADVICE WITH RESPECT TO ANY PARTICULAR ISSUE OR PROBLEM. Learn more about your ad choices. Visit megaphone.fm/adchoices

Integrative thinker Layman Pascal joins me to talk about the meaning of "God" from a metamodern perspective. How does thinking in terms of "surplus cohesion" point us to a helpful way of relating to all the meanings of the term? Why and when is a 2nd person relationship with Reality warranted? Who is this Face in the Universe summoning us to greater communion and transcendence? How do we communicate about all this across the various memetic sensemaking structures of culture (traditional, modern, postmodern metamodern)? Finally, what can folks expect about the upcoming metamodern spirituality gathering on the topic, which will be hosted at Sky Meadow in May and led by Layman? 0:00 Introduction 1:21 Layman's "Surplus Cohesion" Framework 4:48 God as Ultimate Reality in the 2nd Person 9:52 The Face of the Universe: Seeking the 2nd Person in the Complexity Stack 16:27 Some Framing: Reality as Dynamic Becoming, Not Static Being 21:36 Reflecting on the Alpha and the Omega: Problematizing the "Creator" Image 27:46 But Is This Still God? Communicating across Memetic Tribes 37:22 "Real in What Way?" across Levels of Memetic Complexity 45:05 Summarizing a Metamodern Sort of God 47:06 "God" in Quotation Marks: Moving beyond Totality 52:10 The God Encounter 1:08:12 The Divine Other 1:13:33 Praxis: Courting Visio Divina 1:16:41 Pluralistic Mysticism 1:23:10 Trinity as Dynamic Architectonic Plurality 1:27:08 Naturalism and Metaphysics 1:30:46 God is Love 1:37:20 Talking about "The G Word" 1:39:40 The Upcoming Metamodern Spirituality Lab on "God" at Sky Meadow (May 24-26) More on the metamodern spirituality lab at www.skymeadowinstitute.org

Joey was diagnosed with DYRK1A syndrome at the age of 13, through the 100,000 Genomes Project. DYRK1A syndrome is a rare chromosomal disorder, caused by changes in the DYRK1A gene which causes a degree of developmental delay or learning difficulty. In today's episode, Naimah Callachand, Head of Product Engagement and Growth at Genomics England, speaks to Joey's parents, Shaun Pye and Sarah Crawford, and Sarah Wynn, CEO of Unique, as they discuss Joey's story and how her diagnosis enabled them to connect with other parents of children with similar conditions through the charity Unique. Shaun and Sarah also discuss their role in writing the BBC television comedy drama series 'There She Goes' and how this has helped to shine a light on the rare condition community. Unique provides support, information and networking to families affected by rare chromosome and gene disorders. For more information and support please visit the website. You can read more about Joey's story on our website.   "Although we're a group supporting families and patients, actually a big part of what we're doing is around translating those complicated genetics terms, and trying to explain them to families, so they can understand the testing they've been offered, the results of testing, and really what the benefits and limitations of testing are...just knowing why it's happened, being able to connect with others, being able to meet others, but actually often it doesn't necessarily change treatment."   You can read the transcript below or download it here: https://files.genomicsengland.co.uk/documents/Podcast-transcripts/Shining-a-light-on-rare-conditions.docx   Naimah: Welcome to the G Word. [Music] Sarah Crawford: But I would also say it's okay to grieve the child that you didn't have that you thought you were going to have. I just think that's so important. And I think for me, the most difficult thing in the early couple of years was feeling like I couldn't do that because nobody appreciated that I'd actually lost anything. [Music] Naimah: My name is Naimah Callachand and I'm head of product engagement and growth at Genomics England. On today's episode, I'm joined by Shaun Pye and Sarah Crawford, who are parents of Joey, who was diagnosed with DYRK1A syndrome at the age of 13, and Sarah Wynn, CEO of Unique, a charity which provides support, information and networking to families affected by rare chromosome and gene disorders. Today, Shaun and Sarah are going to share Joey's story, and discuss how their role in writing the BBC comedy drama There She Goes has helped to raise awareness of people with rare conditions in mainstream culture. If you enjoy today's episode, we'd love your support. Please like, share and rate us on wherever you listen to your podcasts. So first of all, Shaun and Sarah, I wonder if you could tell us a bit about Joey and what she's like. Shaun Pye: Yes. So, the medical stuff is that she's got DYRK1A syndrome, which was diagnosed a few years ago, which means that she's extremely learning disabled, nonverbal. Sarah Crawford: Yeah, autistic traits. Shaun Pye: Eating disorder, very challenging behaviour. She can be quite violent. She can be quite unpredictable. Doubly incontinent, let's throw that in. She's 17 but she obviously has a sort of childlike persona, I would say, you know. She sort of likes things that toddlers like, like toys and that sort of thing. But that's the medical thing. What's she like, she's a vast mixture of different things. She can be infuriating, she can be obsessive, but she can be adorable. Occasionally, she can be very loving, especially to her mum. Sarah Crawford: She's very strong willed, you know. Once she knows she wants something, it's impossible to shift her, isn't it? So, she's got a lot of self-determination [laughter]. Shaun Pye: So, her obsession at the minute, or it's fading slightly, which is quite funny, is that she's become obsessed by – there's a toy called a Whoozit that she loves, but she became obsessed by the idea of – she was typing buggy baby Whoozit into her iPad, so that's how she communicates. She's got quite good literacy skills. Sarah Crawford: Yeah. Shaun Pye: And we figured out eventually that what she wanted was she wanted her mum to take her to the park to find a buggy with a baby in it that also had a Whoozit in it that she could steal, and when Sarah explained to her at some length that it was not yours, she would say, “It's not yours,” that drove her insane with excitement, at the idea that she could steal another child's toy. So, it's a good example of her because it's funny, and, you know, it is funny, and she's so cheeky about it and she flaps her hands, she's very hand flappy, and she sort of giggles and she gets really excited, but, you know, the 2,000 time she asked to do that, and we have to walk to Mortlake Green near our house, and to the point where – again, it's funny when it happens, but you get to the green and she doesn't even look for the buggies anymore. So, that's an example. But she's a lot of different things, you know, and I suppose the thing that is dawning on us at the minute is that she's 17, she's going to be 18 very soon, and, you know, the list of presents that she gets on her birthday is always the same, ‘cos she's autistic. So, at Christmas, she always gets the same presents. But the idea that, for her 18th birthday, we're going to have to buy her children's toys and – you know – Sarah Crawford: Toddlers' toys. Shaun Pye: Toddlers' toys and everything, it's sort of hitting home, but that's something – a bridge we're going to cross on July 27th [laughter]. Naimah: Yeah, I can imagine that's quite a difficult bridge to cross, but it sounds like, you know, Joey's got lots of personality and you have lots of, you know, lovely times with her as well. I wanted to go back a bit before the diagnosis. So, you mentioned Joey's been diagnosed with DYRK1A syndrome, but can you tell me what it was like before you both – and a bit about your journey, and when you suspected maybe something might be wrong and what you did first of all. Sarah Crawford: I mean, there were hints that things might be wrong before she was born. The measurements were such that they thought there might be intrauterine growth restriction, because basically my belly wasn't as big as it should be for dates, and that was obviously the working hypothesis. And they actually did a scan, an ultrasound quite late on in the pregnancy, which I picked up when I looked at the report was showing a small head measurement. And I remember querying it with the consultant, who said it was probably measurement artefact and nothing to worry about. But after she was born, she wouldn't latch on, you know. We had to switch to bottle feeding straight away. She was small, and the head measurement actually was small. You know, you could see on the very early one, they must have taken it kind of three times to try and get it bigger, probably angling the tape measure, and it had been crossed out and rewritten. That was the pattern. So, her head simply did not grow in those early days in the way that you would expect. So, I was wildly anxious about this right from the get-go, and very adamant very early on that I thought that, you know, she was learning disabled. And to be fair, you know, the GP took that seriously. You know, at the six-week check-up, things weren't quite how they should be. We got in the system very early on, saw a paediatrician really quite early. So, I was, you know, fairly convinced very early. I mean, I'm a clinical psychologist, I've got training in learning disability, a bit more clued into these sorts of things I guess than the general public on the whole, and I think the bigger challenge for us wasn't so much the attitude of, you know, the healthcare system. It was more trying to debate this with family, who were very much of the, “There's nothing wrong with her,” kind of mantra. Shaun Pye: She wasn't our first child, so we had experience – and all children are different, but because we had that comparison – all children are different. Obviously, there's not a set thing. But we had a benchmark in our own minds and hearts sort of, to know that she was missing things that he'd hit, and something wasn't right. And the parental thing – basically, we're talking about grandparents – it was sort of – there were two approaches that they took, one of which was to tell us nothing was wrong, because they couldn't bear the idea that me and Sarah were in pain or unhappy. It was just out of pure love. It's just a natural human reaction to say, “I'm sure everything's going to be alright.” They were just trying to be supportive because that's, you know, what they thought they should say. And then the other approach from other members of the family was again from just a supportive, loving aspect, but it was a sort of, “They just need a bit of tough love, pull your socks up. Lots of children are different and you just need to learn ways of dealing with it.” And the way I describe it nowadays is that they'd mistaken Joey for someone on the far end of a spectrum of abilities or behaviours, whereas she wasn't really on that spectrum at all. She was on a different spectrum [laughter]. She wasn't a difficult child. She wasn't a naughty child, was she? Sarah Crawford: No, no, she was a child whose brain hadn't developed. Shaun Pye: She was a very, very different child. So, all of that has gone on over the years. And genetics wise, we had early genetics testing. Kingston Hospital took quite a lot of interest early on, and then they sort of didn't take any interest [laughter]. Sarah Crawford: No, it's more that they ran out of technology, so they couldn't pinpoint the diagnosis with the technology they had. I mean, the geneticist was excellent, wasn't he? We really loved him. Shaun Pye: Yeah, Sarah's going to like this, ‘cos I'm about to say I love geneticists ‘cos they're – on the spectrum of doctors, I love them, ‘cos one of the guys we saw just looked at it like a puzzle and he was sort of excited to solve it, and he really wanted to work out – and in a way, you could have walked away from that thinking, “We wanted the bedside manner and we wanted the, “Oh, that's terrible,”” whereas he really was just a sort of – he was terribly excited about the whole thing, and he wanted to solve a Sudoku, basically, yeah. But me and Sarah walked away from that just thrilled, ‘cos we're the same [laughter]. There's not a Sudoku or a crossword that we don't love finishing. So, we walked away thinking, “These are exactly the people we want involved.” And so when I say they gave up, that's not fair. They just ran out of – you know, they can't spend increasing amounts of NHS money. So, they tried – you know, different genes were mentioned. Sarah Crawford: Yeah, they tested for a whole load. I mean, his attitude was right from the get-go, you know, based on the history, everything else that had been ruled out, dysmorphic features, those kinds of things – I don't know if that's the terminology they would use now – but that this was going to be a chromosomal disorder, and that they would do the tests that were available, but that it was possible that those wouldn't pinpoint in, but that the technology was changing all the time, and that if they didn't find it now, they would in the future. And that was how it played out. Shaun Pye: There was one meeting that I did get a little bit – having said that, I got slightly – but you didn't – about one of the geneticists, who sat there and said, “We'll do this test and this test, and if they come back with any interesting things then we can get really excited.” And he used the word excited, and I was sort of a bit, “I'm not that excited by all of this.” But actually I calmed down quite quickly, and in hindsight I really wanted someone to get excited by the idea of working out – but then a long time went past. I wouldn't say that we lost interest in finding out what her genetic condition was, we didn't. It's just it's something that became less and less – it wasn't like a holy grail for us. But then the opportunity came along with 100,000 Genomes, and we signed up immediately, and then they did that and it was a few years before that went through the system. And then out of the blue really, we were asked to go and see a geneticist, and we had no idea that this is what it was. I honestly thought it was just a routine sort of, “We've got a few more theories,” or something, and she just said, “We've found out what it is.” And that moment is – well, we tried to describe it in the TV programme, but it's quite hard to describe what goes through your mind when, after 13 and a half years, somebody suddenly says, “Oh, by the way, that thing that happened with your daughter, we've worked out what it is.” [Music] Naimah: I wonder if you could talk a bit about what the diagnosis meant for you both. Shaun Pye: It was sort of different for both of us, wasn't it? I was a bit more excited, Sarah was a bit more… Sarah Crawford: My attitude early on was that, while the label would be nice to have, it wouldn't make any material difference to anything to do – I mean, it was never going to be precise enough that it would give a map out of what we'd expect for her as an individual, and it wasn't going to change the fact that there was a severe learning disability. It wasn't going to change the challenges that we would have over things like schooling, therapies, you know, what the future holds for her. It is useful to have it, but it doesn't really change the day to day. Shaun Pye: But what it did change, and this is where Unique is so brilliant and important, is that it puts you in touch with people who have children with a similar condition. That's the main takeaway from getting the diagnosis. ‘Cos Unique is great, and obviously in a broad sense it's great, but to actually meet people and be in touch with people whose children have DRYK1A – so, I've met quite a lot of them now and I've met quite a few of the children. There was a meetup last year, and you just walk in and you just go, “Oh my god, oh my god” [laughter]. Literally girls running around, just the same as Joey, just the same, and the different ages as well. So, there were some in their twenties and there were some just starting out on their – who'd only, you know, very young, been diagnosed. But just to see your life just in front of you [laughter] is very useful. So, that's the basic takeaway, I would say, from the diagnosis. Naimah: Yeah. It must have been really nice to be connected with those other parents and to kind of share experiences as well. Shaun Pye: It was, it was. And this applies to most – well, every family from Unique that I've ever encountered actually. Nearly all of the DYRK1A – ‘cos it's spread around the world as well, so, you know, there's slight cultural differences, but just to see that they are all of a very similar mindset is comforting, ‘cos it sort of makes you think, “Actually, we haven't been doing this wrong.” It's a sense of humour thing. It's an attitude to the world. It's the way they see their children. It's the way they see the outside world. I'm not saying we're all uniform, of course we're not, but you can see it. When you talk to them, you can just see that they have the same sensibilities as you about the whole thing, and it's sort of quite reassuring really that, you know, we're not outliers. Naimah: I just wanted to go back to, you know, when you were talking about the bit before the diagnosis, and I wanted to come to you, Sarah, to ask, you know, Shaun and Sarah both described their journey with a lot of uncertainty, but I wondered, could you tell me a bit more about the role Unique plays in this part of the journey for parents? Sarah Wynn: Yes. Well, actually I think Shaun's done such a good job of summing up why Unique exists already, thank you, Shaun. But I think really what we're aiming to do is to try to alleviate that sense of helplessness and being overwhelmed, and isolation that often families feel when they have a child that's got additional needs. I think our experience with our Unique community is very similar to that that Shaun and Sarah have described. So, many parents know that there is something – that their child isn't developing as they would expect. And we hear lots and lots of stories of families going to healthcare professionals and actually not being taken seriously, or like Shaun and Sarah were saying, you know, everybody saying, “No, they're just a bit delayed, it will all be fine.” And so I think that's a common experience of many families, that the parents inherently understand and know their child better than everyone else, and it's very common that families have to wait quite a long time to get to that point where they get to a diagnosis. And often I think the uncertainty continues after you get that diagnosis, because as Shaun and Sarah said, you get a diagnosis of a rare condition and actually there just isn't that much information available. So at Unique, we try to help in various ways. One is by connecting families with other families, and that might be other families who've got the same condition, but it might also be families who are just going through the same experiences as you are, so you've got someone to share your journey with. And the other thing we try to do is to help families understand the kinds of genetic testing they've been offered, and a bit about the results of genetic testing. Because of course genetics is something that lots of people haven't thought about since school, and actually quite often hoped they never had to think about again. Although we're a group supporting families and patients, actually a big part of what we're doing is around translating those complicated genetics terms, and trying to explain them to families, so they can understand the testing they've been offered, the results of testing, and really what the benefits and limitations of testing are. Sarah said, often you get a result and a diagnosis from genetic testing, but that doesn't give you a magic treatment that's going to cure your child. It's really important, for all the reasons Shaun and Sarah have already said, just knowing why it's happened, being able to connect with others, being able to meet others, but actually often it doesn't necessarily change treatment. Shaun Pye: I guess one thing I would say, just ‘cos it was important to us, and it's de novo in our case, but that's comforting to know. We always suspected it was and we were always told it was, but to have that confirmed means – I mean, we're not going to have anymore children, but it's more to do with our son and whether there's something inherent that could be passed on. Sarah Wynn: Yeah, it gives you information that you can use for either your own family planning or other family members. Naimah: You mentioned that Joey received her diagnosis via the 100,000 Genomes Project. How did that come about? Sarah Crawford: I think it was offered, as in the 100,000 Genomes Project was the only way that that was potentially available at the time, that this was effectively a project that was going on to try to answer those unanswerable questions with the technology they had at the time. I mean, it was years between us enrolling in it and getting the answer. Shaun Pye: It's so important to me in hindsight the diagnosis, just for all the reasons that we've been discussing, but without doing down the role of genetics, there was a period of Joey's life when we thought we'd run out of road with the testing, and it wasn't something that really I was obsessed with or occupied my mind massively. It wasn't like me and Sarah were saying, “We must get back to Kingston Hospital. We must get back to the geneticists. We must write to the NHS. We must insist that they do this.” We'd sort of resigned ourselves to the fact that they'd done all that they could and they hadn't found it, and that's what it was going to be. Having said that, when 100,000 came along, we obviously jumped at the chance. We had no misgivings about it whatsoever, ‘cos I think we'd resigned ourselves to the fact that we might never know. Sarah Crawford: I think I thought that at some point we would, because the technology, the methodology that they're using obviously was changing all the time, but it didn't preoccupy me because I didn't think it would make a massive amount of difference. It probably made a bit more difference than I thought it would, for the reasons that Shaun and Sarah have said, about, you know, particularly the sort of connecting with others, you know, just realising how useful it is to be able to hear about the similarities and differences that other families experience. Shaun Pye: I think a key point for us, and I'm sure this is true for the vast majority of Unique families, that we never thought that there was a cure. We never ever, ever, ever, ever, ever thought there was. And nobody in our family did. It's not like anyone was saying, “Oh, with this treatment or that treatment…” Once you know that it's DYRK1A, there's obviously things that you can tailor towards her in terms of therapy, you know, there are things that you can do, but we were never under the illusion that if we found out what it was, she could go on and some sort of drug would suddenly make it better. Sarah Crawford: Yeah, we're not queuing up for experimental stem cell treatment [laughter] in weird and wonderful parts of the world, you know. What's happened has happened. Her brain didn't develop properly in utero and beyond. There is no changing that. Naimah: But I guess with diagnosis, and like you said, if you can get some relief from some of those other symptoms that are caused by it, then, you know, that's some sort of relief for Joey and a bit of help. Shaun Pye: Yeah, there are absolutely concrete things that you can learn that will – Joey will never be better, but talking to the other families – eating disorder, that's one of them. Constipation, that's another thing. But hearing their experiences, hearing the roads they've gone down, finding out that there's, you know, a unit somewhere in the country that specialises in this, that or the other, these are concrete things. It's not just about emotional support. It's absolutely about practical support. But there's no magic wand, but there are things that, you know, we've learnt that can help. Naimah: And then Sarah, to come to you then, do you find that families find it difficult to seek out help from Unique once they've received a diagnosis, or are they likely to come quite quickly to you? What's your experience? Sarah Wynn: It's a really good question, and of course we don't know the ones that never find their way to us. But what we try to do at Unique is to be sort of warm and friendly and welcoming, so that it's not too daunting. ‘Cos I think all of these things are an extra thing for parents who are already busy and dealing with lots of medical appointments and therapies, so we try to make it as easy as possible to join us. Many, many families do join us at that point of diagnosis, because that's when they're looking for more information. Actually, you can get in touch with Unique and if you decided you didn't want to join us, that's also fine. So, we have a helpline that you can call. And for some people, joining a support group just isn't their cup of tea, and that's really fine. Other people find us a little bit later on, you know, perhaps when their child starts school or, you know, there's sorts of crunch points where people are looking for extra information or support that they tend to find their way to us. But one of the things we try really hard to do is to get the word out that organisations like ours exist, so that we can be contacted if people want to. And lots of our families come, like Shaun and Sarah, after the geneticist has told them that we're there. So, that's a really important thing for us is that everybody knows we're there. You can join us and involve yourself as much or as little as you want. So, as we've already talked about, one of the things we do is put families in touch with each other, but not all families want that. So, you know, you can join and remain no contact, and stay quietly under the radar if you'd like to. But those people often want their child to be sort of counted in the system, you know. When you say how x number of people have DYRK1A, they want their child to be in that number even if they don't want to go to the meetups, or they're not quite ready to do that. And of course people change. So, some people join us and think, “We're just going to quietly sit here for a bit,” and then change their mind a bit further down the line. I think, although There She Goes, and what Sarah and Shaun have said about their journey is really similar to many people's journeys, of course everyone is a bit different, and so people want different things at different times. And what we try to do at Unique is to be those things for whenever families need us. Naimah: Yeah, that must be really reassuring for families, knowing that they can come to you whenever they feel ready to more than anything. Shaun Pye: Just to jump in quickly as a sort of user of Unique, from the sort of different perspective from Sarah, that is literally how the service presents. That's not an ideal that they aspire to. That's what it's like. So, I can confirm that – I mean, people think different things, and within our DYRK1A group, for example, you know, there's a broad range of people who think various things, but the one thing about it and Unique is it's very well self-policed, so people know how to behave. You won't be subjected to ill informed sort of medical nonsense. It's very well self-policed, but it's also very, very occasionally – I'm speaking for the DYRK1A group – the example they gave me was around covid and vaccinations, and, you know, people have very strong views about it, and these forums aren't the places to be having that sort of discussion. Sarah Wynn: I think that's exactly it. One of the ways families can connect with each other is via an online forum, and generally we take quite a light touch in moderating it, because the forum is for the families, and we want them to feel ownership and that it's their safe space. But yeah, ever so occasionally, it needs just a tiny little bit of input. But yeah, I think Shaun's right, everybody's there for the same reason, and that's to kind of share experiences, sometimes vent about the world, ask questions, and actually celebrate things that other people might not see as such a celebration. You know, lots of our families, their children might be late to walk, and it's a place where you can celebrate all of those sorts of things as well. [Music] Naimah: So, next I want to move on to talk about 'There She Goes'. So, you mentioned it briefly there, Sarah. So, this is the BBC Two comedy drama, for which Shaun and Sarah were both writers on, and it really draws upon your real-life experiences of caring for Joey. And although the series is posed as a gentle comedy, it also displays really frank and honest emotions experienced by Emily and Simon, who are the parents of Rosie in the programme. Let's listen to the poignant clip from the series by Jessica Hynes, who plays the mother, Emily. Emily: You know, when you're younger and daydream about what family you might have – so, I was the girl who thought Claire always got away with murder. Or when we found out Ben was going to be a boy, if it would be like you and Soph, you know, dorky older brother, biffy outdoor sister who everyone liked, you know. But in none of my dreams was there a girl who… Yeah, who was like Rosie. Yeah… No one ever dreams of a child like Rosie… You know, and I… I love Rosie, but why do I have to be defined by her? You know, for a long time, I felt cheated by her, because she wasn't the girl that I dreamt about, you know. She'd taken her place. And then as she got older and I accepted her more, you know, what if it wasn't that she'd taken her place, what if she just pushed in the queue and then if we started again, then if I had, you know, a normal girl, and then I wouldn't have to… I wouldn't have to resent Rosie anymore because I'd have the family that I'd always wanted, and I'd have – I'd have Rosie as well, yeah. [Sobbing] Just after all these years, haven't I earnt that? [Music] Naimah: Off the back of that, I wondered if you could both tell me a bit more about what it meant for you being able to write for the programme and, you know, what it's meant in the aftermath as well. Shaun Pye: So, it came about - I basically am a TV writer and Sarah's a psychologist, but it came about primarily because I was trying to think of something to write about and we realised that Joey's just an incredible character. Those sort of children aren't featured on mainstream television really at all, I would say. And so we thought it would be an interesting thing to do. But from that sort of slightly selfish motive, I wrote an episode, and Sarah read it and said, “You're not doing that, it's not honest enough” [laughter]. So, Sarah came on board as a writer with me and we cowrote it. The whole thing's cowritten. And it's the most important piece of work I've ever done, I ever will do, and it became far more than just a TV programme. The first series went out and we had a screening, and Unique came to the screening, along with some of the other charities, and we were so terrified of what the response would be. And the fact that the response was what it was, which was overwhelmingly, “It's like looking at our own lives on television,” it was recognition. It was nothing to do with whether the stupid jokes were funny or anything [laughter]. It was purely whether – if anyone had turned round and said, “This has got nothing to do with what it's like bringing up our child,” or our brother or sister or whatever, that would have been quite bad for us, but it wasn't, and that's been the overwhelming response since. It's, “Thank you for putting our life on television, ‘cos it's not normally on television.” So, it became that, and so the second series was even more about that, and then the special that we did was almost totally aimed at, we need to tell these stories because there are so many people in this country who this story isn't being told for them. And it so happened that Joey hit puberty and had some very, very, very problematic behaviours, sort of self-harming behaviours, it happened quite close to her being diagnosed, so we thought this story is just written for us. Joey's written it for us. So, we just sort of wrote down what happened. That was sort of what it was. And then obviously the response to that was very good. So yeah, and we wanted to feature Unique ‘cos that was such an important part of what we'd been through. So yeah, it went from me wanting to further my career to that having nothing to do with it, and me wanting to [laughter] tell the story of children with rare chromosomal disorders and learning disability, and that's what it became. Naimah: I'm sure it must have been almost quite cathartic, I imagine, in a way, to share your story that way, and also, you know, give you a real sense of accomplishment to be able to kind of share your story on that platform. Like you said, like it's never been done before in such a way, and to get that kind of response from other families, it must have really just helped you both in your journey as well, I can imagine. Shaun Pye: For me, because it's what I do for a living, it still retained a certain sense of my job. And, you know, emotionally, obviously, entirely committed to it. All the bits that make you sort of cry, or all the bits that are like, oh my god, Sarah wrote – I wrote all the stupid bits that David Tennant says [laughter]. So, I think it was more cathartic for you. You really had to dig deep into some quite unpleasant memories [laughter]. Sarah Crawford: Yeah, it wasn't always the most comfortable process, you know. We'd sort of agree – I mean, particularly in the earlier process, we'd sort of have a little think about what we wanted to talk about, and then I'd go off and like kind of delve deep into memory, and just type a stream of consciousness, and I'd be sitting there sobbing [laughter], you know, with tears rolling down my face, you know, just reliving these really awful experiences. But yeah, I think the end process ended up being cathartic, and a lot of that was stuff that I would never have imagined sharing with anybody [laughter], let alone, you know, this huge audience of people, which – yeah, strange how things evolve. Shaun Pye: Yeah, I think possibly if we hadn't done this then we might have just tried to not think about these things and not bring them back, and I think we probably wouldn't have spoken to each other – we may have, I don't know. I don't know what would have happened. But I don't think these things would have come out into the open. And very interestingly, another side aspect of it in the catharsis way is the effect the programme had on the wider family. There were certain members of the family who were really shaken by that programme, really shaken, because they had a set view. Even as Joey got older, they had a set view of the history and what had happened, and they were really shaken by the idea that their – out of love again, there's nothing bad here, but they were really shaken by the idea that their actions had a detrimental effect on us when Joey was born. You know, there were people saying, “Well, I didn't say that there was nothing wrong with her,” and, “I didn't say this or that,” but actually when you see it presented in the programme then there was a lot of re-evaluation that went on, in a good way, in a positive way and it's all good. Sarah Crawford: I think there's something about seeing it, you know, and especially given, you know, we were so fortunate with the cast because they're so good at portraying it. And I think there's a power in seeing things played out rather than just hearing about them in the abstract. Naimah: Yeah, definitely. I definitely had moments of crying and laughing, and a range of emotions while I was watching it, so yeah, definitely very powerful. And I guess it's really great for other families going through similar circumstances, for their families to see what's happening and, you know, there's a lot that can be learned from the programme as well. So, you know, it's, yeah, really a powerful piece that you put together. Sarah Wynn: I would really like to echo that. I think Shaun and Sarah have said before that they didn't do it to represent everybody's experience, but actually that is exactly what it has provided. I would say that huge numbers of people are really grateful that that portrayal is there, so that they can be seen and heard and understood so brilliantly. But it has provided other families with the opportunity to show it to their friends and family, so that they understand their life as well. And so I think it's had a hugely positive reaction from our Unique community. And I think it's not always an easy watch, I think lots of families would say it's challenging to see it up close in front of you, but I think it's really cathartic and has been just incredibly powerful at showing these sorts of stories, which, as you said, just don't get shown very often. And I think particularly when we think that rare conditions, although they're individually rare, if you put all of the rare chromosome conditions together, they're not actually that rare, so these are stories that are going on up and down the country and all over the world. Shaun Pye: Just to follow up on something Sarah said earlier on about, you can take as much or little as you like from Unique, it's the same with the show. I've had lots of people get in touch with me or talk to me in person and say, “I'm really sorry, I tried to watch ‘There She Goes' and I can't watch it,” and I have to say, “Don't apologise, you have nothing to apologise for. You take what you need from it. If you can't watch it then don't watch it. If you can watch it then do. There is literally no right or wrong way of doing this. There really isn't.” But having said that, the nicest comment – well, one of the nicest comments I've seen was on the DYRK1A forum. It was someone who casually referred to it as “our show,” as in the DYRK1A community, it belongs to them, and that – yeah, a little tear, a little tear went down my face [laughter]. Naimah: Yeah, that must have been a lovely thing for you to read. That's really nice. Sarah Wynn: Also from the Unique and general people who have rare conditions community, it's been so fantastic for raising awareness about genetic testing and rare conditions in general, and, you know, there just isn't – because these stories don't get talked about or shown about very often, it's been really great from that point of view as well. Naimah: And hopefully this will be the catalyst for similar programmes and, you know, more things in the mainstream media as well. And you did touch on it briefly there, Sarah, about, you know, what the programme's meant for Unique, you know, and the Unique community being very supportive, but have more people reached out to Unique since the programme? Sarah Wynn: I think the main takeaway is that being heard, “Our family's being heard and represented,” which I think is really important. But yes, we've got lots and lots of new families that have come to us through watching There She Goes. And it was really fortuitous that when the special aired last spring/summer, it was the evening before our awareness day, which I think was a complete coincidence but actually turned out to be really great timing. So, we got lots and lots of new families get in touch with us, many of whom then went on to join us. But actually what it also did was get lots of members who'd been members for a long time but perhaps had been a bit quiet, or hadn't been in touch, so it sort of also reinvigorated that engagement from other members who we might not have heard about for ages, and who might have got older children and had been in touch at the point when they were diagnosed, and then hadn't been. So, it has just been such a brilliant, brilliant experience to have Unique as part of it. And I think that's really important. At Unique, we have members from 120 different countries, and the reason is that when you have these rare conditions, you're really unlikely to find someone in the same town as you, possibly not even the same country with some rare conditions, and so the idea that you can connect with people all over the world I think is really important, particularly in rare conditions. Naimah: Yeah, that's great, and hopefully, you know, it just continues to increase support with Unique and, you know, families know they can still come to you as a resource and as that continues. So, I just wanted to kind of wrap up here and come to the final question. So, you know, your story highlights a lot of challenges, a lot of difficulties, a lot of ups and downs, but I just wondered, Shaun and Sarah, if you had any advice for other parents going through similar circumstances. Shaun Pye: Yeah, I think one of the things is what I just said, which is I would tell people there's no right or wrong way of doing this. I would say, from my experience, don't be hard on yourself, and you're going to think that you wish it never happened to you and that's fine. That is absolutely fine. That's normal. We've all thought that. It doesn't make you a bad parent. It makes you a normal human being. I would say to get in touch with Unique. I shied away a little bit from help and charities, ‘cos I think it was a sort of pride. I think I had a preconception that it would be glass half full, put on a happy smile, best foot forward, blitz spirit sort of. We have encountered it a little bit over the years, not very much, but we've encountered a little bit of, you know, “As long as you love them, that's the most important thing,” and, you know, which is fine and that is an okay perspective to have, but there are times when it's just not what you want to hear. I want to be allowed to feel the feelings that I'm having without feeling guilty. So, I would encourage people to seek support from Unique or from wherever. But, you know, generally, the thing I've learnt about people is that the vast, vast majority of people are nice and kind and understanding about this. Not everyone, but most people are good people and, you know, people should remember that, I think. Sarah Crawford: Yeah. I mean, the first thing I was going to say in terms of advice to other people was something Shaun said already, which is the don't be harsh on yourself, because, you know, you're allowed to find it difficult. But I would also say it's okay to grieve the child that you didn't have that you thought you were going to have. I just think that's so important. And I think for me, the most difficult thing in the early couple of years was feeling like I couldn't do that because nobody appreciated that I'd actually lost anything. The world seems to use the word difference a lot at the minute, you know, “These children are different, they're differently abled,” but actually it is disability [laughter], and it is more difficult, you know. There are rewards, there are positives, but, you know, she's 17 and a half now, our daughter. When our son was 17 and a half, you know, the challenges were different, but they were also nowhere near as big [laughter], and I don't think that should get lost. Because I think parents need to feel it's okay to get the help they need and to push for the help they need, and not feel like they've just got to kind of put on a brave face and, you know, as Shaun was saying, the attitude sometimes of, “Well, you've just got to get on with it.” Because while you do, actually, you know, you do need help to do that. It is difficult. Shaun Pye: The only other thing I'd say is, just ‘cos Sarah just mentioned it and it gets forgotten, is the siblings thing. The families with Unique will have all manner of different configurations. I can only speak from our own experience, but Joey has an elder brother, Frank, who is, well, in my opinion, the best human being in the world [laughter], and I'm sure in his mother's opinion as well, but my experience, never forget about the toll it takes on siblings. ‘Cos Frank is a very, very loving brother. Only last night, Joey was typing, “Frank book.” ‘Cos he's gone to university, she likes looking at pictures of him in the photo albums. She likes looking at pictures of old toys mainly. Sarah Crawford: Yeah, yeah, she likes looking at her as a baby and the toys they had. Shaun Pye: Yeah, but it's not really advice, it's just, you know, there's a danger that Joey could have taken over our entire family life, and especially Sarah made sure that didn't happen and that, you know, we were a unit and he was – but, you know, it is possible that it can swallow up your entire life. [Music] Naimah: Okay, so we'll wrap the interview up there. Thank you so much to our guests, Shaun Pye, Sarah Crawford and Sarah Wynn for joining us today as we discussed Shaun and Sarah's journey to Joey's diagnosis, and how charities like Unique can support families of those living with rare conditions. If you'd like to hear more like this, please subscribe to the G Word on your favourite podcast app. Thank you for listening. I've been your host and producer, Naimah Callachand, and this podcast was edited by Bill Griffin at Ventoux Digital.

There are a range of outcomes from a genomic test. The results might provide a diagnosis, there may be a variant of uncertain significance, where a genetic variant is likely the cause of the condition, or there might be no particular gene found that is linked to the phenotype or clinical condition - also known as a "no primary finding" result. In this episode, our guests explore the impact of a "no primary finding" result on families, discussing the common experiences and expectations of parents and patients who undergo that genetic testing, and the role that hope plays in the experiences of children with rare and undiagnosed conditions. Today's host, Lisa Beaton, member of the Participant Panel at Genomics England is joined by Dr Celine Lewis, Principal Research Fellow in Genomics at UCL, Great Ormond Street Institute of Child Health, Jana Gurasashvili, a Genetic Counsellor, and Louise Fish, CEO of Genetic Alliance.   "I think it's also really important to add that hope isn't necessarily lost when you don't get a diagnostic result. And in a sense, what can be really helpful is for genetic counsellors to reframe that hope...sort of giving it a different context."   For more information on the SWAN UK project which supports families with children that have been through genetic testing but have not found a result following that genetic testing, visit the website. Read more about the study by Jana Gurasashvili and Dr Celine Lewis: The disequilibrium of hope: a grounded theory analysis of parents' experiences of receiving a "no primary finding" result from genome sequencing.   You can read the transcript below or down it here: https://files.genomicsengland.co.uk/documents/Podcast-transcripts/Hope-for-those-with-no-primary-findings.docx    Lisa: Hello, welcome to the G Word.  Lisa: I think in the back of my mind, subconsciously, I had hoped that when we eventually got a diagnosis, it would – I don't know, bells and whistles, balloons going off, fireworks, etc. And then the experience of a letter thumping on the doormat, and I recognised the postmark quite quickly, and it was at that moment I suddenly thought, “Oh gosh, I haven't buried all these feelings of hope.” Because I opened that letter with quite trembly hands, and then this diagnosis or lack of diagnosis, you know, nothing had been found, and it was a bit… I don't know if it's been described as like a nail in the coffin experience, because I really hadn't realised I was still clinging to this hope all that time, and then again it was, you know, another, “No, nothing's there. Lisa: My name is Lisa Beaton and I'm a member of the participant panel at Genomics England. On today's episode, I'm joined by Dr Celine Lewis, the principal research fellow in Genomics at UCL, Great Ormond Street Institute of Child Health, Jana Gurasashvili, a genetic counsellor, and Louise Fish, the CEO of Genetic Alliance. Today we'll be discussing the impact on parents with children with rare conditions, who received a no primary findings result after diagnostic whole genome sequencing. If you enjoy today's episode, we'd love your support. Please like, share and rate us on wherever you listen to your podcasts. Can I ask all of us here present to introduce themselves, please? Celine: Hi everyone, I'm Celine, I'm a behavioural scientist in genomics at UCL Institute of Child Health, and I currently hold an NAHR advanced fellowship to look at the implementation of WGS, or whole genome sequencing, in the NHS. Jana: I'm Jana Gurasashvili and I'm a genetic counsellor at Northwest Thames Regional Genetic Service, and prior to that I was at Great Ormond Street, involved with consenting families to the 100,000 Genomes Project, and I also have an ongoing interest in the lived experience of patients and parents of genetic counselling and rare disease. Louise: Hi, I'm Louise Fish, I'm the chief executive of Genetic Alliance UK, and we are an alliance of around 230 charities and support groups that work with patients and families who have particular rare conditions. We also run a really longstanding project called SWAN UK, and SWAN stands for syndromes without a name. And the SWAN UK project supports families with children that have been through genetic testing but have not found a result following that genetic testing. So, it's clear they have a genetic condition, but science hasn't quite advanced far enough yet to tell us what that means and what that will mean for their child, and what that will mean for their family over the coming years. Lisa: And I personally can attest to the wonderful support that SWAN UK can offer because, as the parent of a still undiagnosed child, I have been involved myself with SWAN UK since my daughter was around the age of three to four years old. It's brilliant being a part of my big SWAN UK family. We first realised that there were some – I suppose something wrong with our daughter when she was around two weeks of age, but it wasn't something I could specifically put my finger on. I couldn't at that point have taken her to a doctor and said, “I don't know what's wrong but there's something wrong.” I just knew in my heart of hearts, probably because I have three elder children, that there were issues, and things weren't developing as they should. She cried a lot, she screamed a lot, she never seemed to be comfortable in any position when you held her, when she was asleep, when she was upright. It didn't seem to matter what you did, she was just a rigid, stuck child, for want of a better word. And all my mum senses were screaming, but it completely sounded ridiculous to take her to a doctor saying, “She feels wrong.” And I think that's quite a SWAN UK experience, from chatting to other families with similar situations. The parents just know that there's something not right, but it can be very isolating not to be able to identify kind of where that starts and what it is. In our case, it wasn't until our daughter was nine weeks old that things became much more obvious, that there were developmental concerns physically and medically, and at that point we went from my sort of mutterings that there was something wrong but I wasn't sure what it was, to a sudden hospital admission with quite a shocking turn of events. From something that had started out quite normally, as a routine visit to the baby clinic, to suddenly being seen by a troop of different paediatricians, and doctors coming in and out constantly, asking different questions, and sending us off all over the building for different tests and x-rays and imaging. And being given a partial diagnosis that our daughter had a condition called arthrogryposis, but it was clear that there was much more going on than that, and we would need referring to many more different fields. And that day really our diagnostic odyssey, for want of a better word, began. So actually, in terms of that diagnostic odyssey, many parents of children with rare undiagnosed conditions experience this, and when we agree to have genetic testing, we feel that we are going to get these answers straight away, and that every appointment that you go along to is going to be the one that brings you the answers. But certainly in our experience kind of 15 years on, that's not been the story at all. Celine, can I ask you to explain what the words no primary findings actually mean when a parent receives that regarding their child? Celine: So, there's a range of different possible outcomes from a genomic test. So, the results might provide a diagnosis to that patient and family, or other situations, there might be a variant of uncertain significance, so we don't necessarily know if the gene that we found, a genetic variant is the likely cause of the condition, or we might find no particular gene at all that we think is linked to the child's phenotype or clinical condition. So, that's what we mean really when we're sort of saying no primary finding. Lisa: Louise, would you be kind enough to explain what you think the impact of no primary findings means to families like my own, parents who don't have a genetic likelihood cause, just a gene thrown up to diagnose their child? Louise: Yeah, I think it's a huge challenge for families, and you'll obviously know that from your own experience. People go to have genetic testing hoping it will give them some answers, first and foremost, just to kind of understand, you know, what condition their child has and what the likely impact that's going to be on their child and on the child's life, and on the family's wider life. And I think one of the things that we really ask genetic counsellors and geneticists to do is help people understand before the genetic testing takes place that there may be nothing found from it, so that that kind of expectation is built in. Because people hope that they will get a diagnosis that will give them answers about what the impact of the condition will be on their lives. In a best-case scenario, access to a particular treatment that might be a huge help for their child, but at the very least, access to a range of services and support for their child. So, that kind of diagnosis is often seen by families as the key to unlocking a range of services and support that will help them and their families at what is the beginning of a lifelong journey. And I think when families get no diagnosis, there's a real concern on behalf of families, a, that they don't understand how their child's going to be affected by the condition. What we're really careful to say to families is, “Just ‘cos you don't have a diagnosis with a name, your child is still the same person they were before. They still have exactly the same bundle of needs as they had before, and you will still need to work with the NHS and with wider services to make sure that they can access speech and language therapy, and physiotherapy, and all of the services that they are going to need and you are going to need to help them live their lives to the full.” But I think that moment of not getting a diagnosis is when people feel I think real – the uncertainty continues, and uncertainty, we know, is a really hard thing to live with, and the lack of clarity about which services you'll be able to access. So, I think psychologically it's a massive impact on the family not to have the answers that they were looking for, or the key to the services that they were hoping would be there. Lisa: Thank you, Louise, yeah, I would definitely agree with that. We had a no primary findings result in I think it was 2019. It was a really bittersweet moment because my daughter's list of various different conditions kind of – by this point, named parts of difficulties for her spans over sort of two pages of A4, and yet on the letter back from the genomics service, it just says that, you know, nothing causative has been found. And so part of you is left wondering, well, how can there be all these different conditions or difficulties, and yet there's still nothing there? And I know personally, I had comments when she was much younger, every time a test came back, where people would say things like, “Oh well, that's great news,” and to some extent it was great news that something hadn't been found, but also if that hadn't been found, what was still out there? And that fear of kind of the unknown was extremely difficult. And also paradoxically, there was a sense of some very well meaning people saying things like, “Oh well, if they haven't found anything then there can't be too much wrong.” But yeah, I have a child who is tube fed and on multiple different medications, and cared for basically for 24 hours a day, so that doesn't really fit in with the picture of there not being very much wrong from a personal perspective. And I think it can make you as a parent/carer feel perhaps there's a tendency to downplay that there is an issue and that perhaps, you know, you're making it up, for want of a better word, and that sense of isolation around that can certainly be problematic. Celine, if I can come to you, that diagnostic odyssey, what are the common experiences and expectations of parents and patients who undergo that genetic testing from your perspective? Celine: Well, I think sort of parents go into genetics testing for a whole range of reasons really, and Louise has already alluded to many of these. Ones that I've come across in my own work include wanting to know why their child has a particular health problem, so that that child can access the most suitable treatments or therapies, or even access clinical trials. Even relief from guilt for many parents, a validation that the parents hadn't done anything wrong during their pregnancy to cause the child's condition, and that's hugely important really, to try and get that relief from guilt. Also to know whether future children might be affected by the same condition, and then more social reasons really, for example, making contact with other parents through support groups, or access to social and educational support. And I think there's also a drive from many parents to feel that they're doing everything absolutely possible for their child. I mean, particularly with something like the 100,000 Genomes Project, it was really a sort of first of its kind project, where patients were on a significant scale able to access this new whole genome sequencing technology. So, many of the parents taking part in that project felt like pioneers, and there was really a lot of expectations around whole genome sequencing in delivering a diagnosis for those parents who'd previously not been able to get hold of one. Lisa: Yes, I strongly can resonate with a number of the points you made there, particularly the feelings of guilt. I must have asked myself a thousand times whether, you know, something I did do, something I didn't do, something I thought of, something I hadn't thought of [laughter], all those questions that swirl around, particularly in the small hours of the night when you feel particularly alone. And yes, I can completely relate to that. And also although SWAN UK is primarily for children and parent/carers whose children don't have a diagnosis, actually a number of the parent/carers on there will have children with diagnoses that are so very rare that absolutely, you know, very, very little is known. They might be the only parent – the diagnosis, for want of a better word, they may have received may just be a series of kind of numbers and genetic dot-dashes, forgive my layman's terms there, but it may not actually help them any further along in terms of feeling that they know anything further or the direction of, you know, where that will lead their children, and that can feel very, very isolating, I'm sure, probably just as much for those of us who don't have that diagnosis. Louise: Yeah, just to add to that, I think that's absolutely right, Lisa, and I just want to give a shoutout – at SWAN UK, we tend to support families who don't have a diagnosis at all, or, as you say, a small number of families who do but have been part of the SWAN UK family for so long that we're very happy to keep them because of the support they're finding from other parents. We work really closely with another of our members, Unique, who are a charity that support parents in exactly the situation you've talked about, where people have finally got a diagnosis and it's that kind of relief of having a name, but it's a super long name, and you find out you're one of only three families in the world with that diagnosis. And so although there's a real I think comfort for people, perhaps if you have a five year old and you're meeting a family who have a 13 year old and a family of a 19 year old, then you start to see a little bit about how your child might develop, but there's not enough kids affected that you can be really certain about that. So, it gives you a little bit more information, but not the kind of wealth of information you were hoping for about how your child's going to be impacted by a particular condition, and what the future might hold for you and for them. So, SWAN UK and Unique very much work alongside each other to kind of support families on whichever part of that journey they're on, because there's still a huge amount of uncertainty for families with those super rare conditions, as you say. Lisa: Definitely, and I'm sure you'll be familiar, Louise, yourself if you get time to go on the online communities and seeing the question that pops up quite regularly when somebody has received a diagnosis of, “Can we still remain part of the SWAN UK family?” And they very much use that word, family, because I think they do feel that, although all our children are different, there are children with physical, medical, cognitive, a combination of all the above syndromes, conditions, etc, they feel that kind of embrace of all being in a collective club of rare and unique and undiagnosed, and that's very comforting to the members. Louise: Absolutely, yeah, I think that sense of belonging and being able to reach out to other families that you've been on that journey with for many, many years. You know, many of our families join when their children are like one or two, and they're still with us when, you know, their children are 26, 27 [laughter], and that sense of having that community and that family and that belonging is really, really important to people, I agree. It makes a big difference psychologically to be part of a community you can reach out to and ask the questions that perhaps you can't ask to other people. Lisa: Celine, can I ask you how many patients for the 100,000 Genome Project have had a no primary findings diagnosis back? Celine: Well, back in 2021, there was a paper published in the New England Journal of Medicine, which reported that, in the initial pilot for the 100K, a diagnosis was found for around 25 percent of rare disease participants, and other studies looking at the diagnostic yield of whole genome sequencing have put the number anywhere between 25 percent to 55 percent, depending on the clinical indication. And we know that even already from the 100,000 Genomes Project, this pioneering project has led to more than 6,000 diagnoses being identified, and that number will obviously continue to go up as they explore the data and gather new insights. However, that still obviously leaves a significant number that won't get a result from whole genome sequencing, as many as half of those rare disease patients, and that was really the basis of the study that Jana and I worked on. So, we felt that there had been so much research really looking at the experience of parents who do receive a genetic diagnosis, and that a lot of attention rightfully does focus on the amazing successes of the 100,000 Genomes Project and genomic medicine more broadly, but actually that there is a considerable number of patients and parents and families who don't get a result, and we felt that it was important that we also focus on those parents and patients, and try and understand their experiences. Lisa: Yes, you can feel, if your child, for example, is under multiple different care specialists, that it can be quite hard, when you've just got this list of different names of things that are wrong, that you feel very much still out on the limb and forgotten about. But it's clear that, from your work, you're identifying that and pointing that back to the specialists, the consultants, to remind them that these parents and these children are still finding their ways through. Can I ask you, Jana, the study that was conducted, what would you say the main things from that study told us? Can you describe some of the emotions experienced by the parents, and what challenges that they have faced along that receiving the no primary findings diagnosis? Jana: Yes. So, many participants really felt very strong disappointment and sadness on receiving that no result, and for many, it kind of reflected the feelings they had had when they first realised they had a child and there was no diagnosis for their condition. And as Celine said, this was such a new technology that people had invested a lot of hope in, and so many felt that it had been their last chance of finding a reason for their child's condition, and that they'd come to the end of the road with that no primary finding result. And, well, one person described it as another door shut. And people talked about the actual toll taken, the emotional and physical toll, and one person described feeling low for several weeks following the result. And some talked about the timing of the result. Somebody got it as a letter just before Christmas, and so their whole family holiday that they'd prepared was marred by getting that news just before Christmas. And it often seemed to leave parents feeling isolated and unable to contribute to normal parental roles, such as going to parent groups, etc, because they felt that other mothers particularly - as it's mothers we were speaking to, other mothers, their experience of motherhood was so incredibly different to their own, and they felt a lack of support. And one parent actually talked about wanting to lock everyone in the house just to escape the feeling of judgement and pity from outside the front door. And some parents talked about finding it hard when other people would post on support groups that they had got results from the 100,000 Genomes Project, which was very difficult. And some talked about hope as finding it hard to keep hopeful but needing to keep hopeful. So, they talked of hanging onto a little bit of hope, as though that was quite an intense thing, which I think, Celine, you'll agree, that made us able to kind of identify that hope was really part of a coping mechanism for this whole process of going through this diagnostic odyssey. Celine: Yeah, people sort of talked about not wanting to let go of hope and the importance of hope, and that without hope, there was no sense of wanting to continue this journey of trying to find a diagnosis, and that it was still very important to people. And I think that parents did understand that, even though a no primary findings result now, that doesn't necessarily mean that they won't get a diagnosis at some point in the future. So, there's obviously the opportunity to do future reanalysis of the genome, particularly as we understand more about the function of different genes, and as new genes are added to many of the panels that we're using in whole genome sequencing. So, I don't think not finding a result means that there is no hope in these circumstances, but for many parents, they did talk about hope being too painful, and not wanting to be let down again, and really preferred to focus on the here and the now rather than necessarily focus on the future. Lisa: Yes, I can only speak from my own experience here, but I think I primed myself to actually forget about going on the 100,000 genomes sequencing because, having undergone genetic testing for certain conditions that they were quite convinced my daughter had from around the age of four months through to around the age of three years, I'd gone to so many appointments and thought, “Oh, this'll be the time that I turn up and somebody will tell me this is what is the diagnosis.” And when I then joined the 100,000 Genomes Project in 2015 with my husband and my daughter, the genetic experience, the discussions that we had at the time were very helpful in that it was made quite clear to me that potentially we wouldn't get a finding, and actually that any information that did come forward was perhaps unlikely to be hugely beneficial to our family at that point. So, I was quite clear what potential finding would mean to us. But I think in the back of my mind, subconsciously, I had hoped that, when we eventually got a diagnosis, it would – I don't know, bells, whistles, balloons going up, fireworks, etc. And then the experience of a letter thumping on the doormat, and I recognised the postmark quite quickly, and it was at that moment I suddenly thought, “Oh gosh, I haven't buried all these feelings of hope.” Because I opened that letter with quite trembly hands, and then this diagnosis or lack of diagnosis, you know, nothing had been found, and it was a bit… I don't know if it's been described as like a nail in the coffin experience, because I really hadn't realised I was still clinging to this hope all that time, and then again it was, you know, another, “No, nothing's there.” And I think because of the work I've undertaken with SWAN UK as a volunteer, and being quite involved in wanting to sort of educate myself and learn more, I did understand that, even though we had no primary findings, it didn't mean that the study, everything was closed to us. It didn't mean, you know, that things won't still be looked for. But equally, at the same time, it just meant that we had nothing yet to pin anything on at that point. And I think it's quite hard to pick yourself up and dust yourself off again, to be like, “Okay, we're still here, we're still circling that drain,” as it were. I think actually that takes us on quite nicely really, about what role hope has in the experiences of a child with rare and undiagnosed conditions. And again if I can just say that there's hope and there's realism, and somewhere along the way, if you've been on the journey for quite a long period of time like ourselves, you have to try and find a way of living with that hope and realism all at the same time. So, we're still hopeful that one day we might get some answers, but we're realistic that day to day we need to focus on the difficulties or the experiences that my daughter has, so that we can manage to give her the skills to live her life to the very best of her abilities. Certainly, that's our experience. And also I think if I'd let myself dwell forever on not having a diagnosis or a pathway specifically for that, it would have been quite difficult to carry on, pick ourselves up every day. What would you think about the role of hope there, Louise? What would you say your experience is from chatting to fellow parent/carers? Louise: Yeah, I think you've described it really eloquently and better than I'll be able to do, but when we talk to people, the phrase I always have in my head is kind of hope for tomorrow and help for today are the two things that people are looking for. So, making sure that that hope for tomorrow's still there both in terms of, you know, the NHS being really clear that it will provide support for individuals without a diagnosis, and there may be opportunities for reanalysis in the future as science makes future progress. And, you know, there is progress being made so fast at the moment in genomics and that's really welcome. So, making sure that people who've already had whole genome sequencing but not found anything continue to have access to that potential reanalysis I think is really important. As you've rightly said, Lisa, as well, thinking through in terms of hope for tomorrow, the opportunity to take part in clinical trials and to make that as easy as possible where treatments are being delivered, to have the opportunities to take part in trials for non-condition specific treatments, whether that's for epilepsy, which affects people across a whole range of conditions, or sleeplessness, which affects people across a whole range of genetic conditions. You know, there are both trials that only people who have a particular condition can take part in, and trials that are open more broadly, so making sure those opportunities are available as well, so that people have that kind of hope for the future. But alongside that, I think it's really important for the NHS to be clear with people about what help for today will continue to be available, and so we are working really hard with the NHS to emphasise the fact that when no diagnosis is possible, the NHS still needs to be clear to people about how they will be supported, whether that's through the genetics team or a particular discipline, perhaps the one that is the closest fit for their child's biggest need, whatever that may be, that they can still access more joined up care. So, you know, who is the person in the NHS, if you don't have a diagnosis, who's going to help you secure referrals to speech and language therapy, to physiotherapy, to learning disability nurses, and to the package of care that your child may need. Who is the clinician, if you don't have a clear diagnosis, who's going to be the person with the authority and the confidence to lead the multidisciplinary team, maybe up to 30 healthcare professionals who are going to support your child. You know, who is going to be the lead clinician that's going to pull that multidisciplinary team together and make sure that your child's not being prescribed stuff that's contraindicated, or that's going to help one element of their condition but make another element worse. So, we are really trying to work with the NHS to make sure they're thinking through, where will that support be for the family in terms of their healthcare. And alongside that, you know, many wider services like schools or social care or employers welcome the chance to talk to a geneticist or a genetic counsellor or nurse to understand what adjustments they might need to make for someone who clearly has a genetic condition but doesn't have a clear diagnosis. And so we're trying to kind of make sure the NHS is both focused on the kind of science side and making sure that the hope for future findings is there, but also the help side, and making sure that the right package of care is still available for families who clearly have a genetic condition. Lisa: Actually Louise, yeah, you've really summed it up excellently there, and whilst I am hugely grateful to the NHS and the various services, I can say, hand on my heart, my daughter has a huge number of professionals involved, both from the health side of things and social care side of things, and actually the person that kind of holds all that together is myself. And because we're under multiple different teams, every time a new medication, for example, is prescribed, I need to go back to our lead team, which in this case happens to be neuromuscular, and check that, for example, if gastroenterology have prescribed a medication, that it's not contraindicated from a neuromuscular side of things and so forth. It's all a bit like having sort of interlocking parts of a jigsaw, but perhaps no picture to follow [laughter], and that can be quite an isolating experience. And certainly, having chatted to fellow parent/carers, I know that's their experience as well. And I imagine, Celine and Jana, you found sort of similar experiences when conducting the research. Celine: Yeah, so my PhD actually was focusing on the sort of journey for parents as they go through the diagnostic process, and one of the things that came out really strongly from that body of work was how the parents were really carving their own care pathway, how they had to sort of push and fight to access services, but at the same time were the gatekeepers for their child's health. Having to make sure all the various teams and clinicians were kept up to date with all the different tests that they had and all the results. And, you know, at times, this could be really frustrating for a lot of parents, ‘cos they had to keep repeating their story over and over again, particularly ‘cos they didn't have a diagnosis. So, these parents really were having a very different parental experience to many of their friends and family, because their experience of being a parent to a child with an undiagnosed condition was really sort of as being a patient advocate, and as having to push and fight to access services. Lisa: Yeah, it's quite a unique experience. You are the specialist for your own child in that sense, I think would be the way I'd describe it. And I suppose over the years, I've got so used to sort of trotting out different medical explanations in terms that you can almost sound like you know what you're doing [laughter]. And a few times when I've been at medical appointments, and perhaps we've met a new specialist or consultant, they've said, “Oh, what's your field? What's your area of expertise?” And actually you just think, “No, I'm just a specialist in my own child” [laughter]. But that's quite an empowering feeling actually, so I guess that plays back into the feelings around hope and expectation, even with having an undiagnosed child. Lisa:    When I was recruited to the 100,000 Genome Programme, we didn't actually as a family receive genetic counselling specifically, and I know that this is something that is incredibly important to many families, and how that can support you sort of going forward. We were quite lucky in our experience in that we knew that our daughter was definitely going to be our last child, so we didn't have the thoughts and insecurities around potentially what it might mean for any future children that we had. But certainly as my daughter has got older and she's asking her own questions, and our older children are at a stage in life where they're looking at potentially having families in the future, I know that those things have come up, and we're just still exploring what that will mean in the bigger picture. But can you tell us, Jana, really what can genetic counsellors do to help parents feel less isolated and better to cope with the uncertainty surrounding their child's condition? Jana: Yes, well, I'm sorry to hear you didn't have any genetic counselling prior to going on the 100,000 Genomes Project, because that consent conversation right at the beginning, before the whole genome sequencing, is really important. It's important to know what the range of outcomes may be, so that it may be that you might get a result, you might get a variant of uncertain significance, or you might get no result. And parents in our study did suggest that their sense of isolation when they got a no primary finding result would have been alleviated if they'd known how many were not getting results. So I think in the longer run, it's 40 percent perhaps received a result, so that's 60 percent that didn't receive a result, so those parents were not alone, but they felt very alone. And some suggested if they'd just had a leaflet really explaining that, and explaining that they'd still contributed to research and that that had been, you know, a good outcome in a sense, then they would have felt better about it. So, a lot of work can be done before the testing really, to explore how you might feel on that range of results, and then that way sort of prepare parents for how they're going to feel, and perhaps that helps them to have things in place, to know that it might be a vulnerable time with that letter, although that was particular for the 100,000 Genomes Project, to get the result in a letter in that way, and as you described, after such a long time, that you'd been able to forget that you'd been on the project. But to actually be a little bit prepared that it make take its toll on you might actually help with preparing oneself. It also might be helpful to include ways of promoting ways to enhance health and wellbeing for parents in terms of practical support, such as those things that you're already attempting to access, like the respite services, school support, support groups, and thinking about psychological wellbeing and ways of managing stress, psychological support for parents, and possibly spirituality based resources as well. And focusing maybe on what is known about the child's condition even without a diagnosis, so what's likely to be beneficial, and support parents in actively coping, such as what research they might be able to access, and continued medical support. And also actually having a named person within the genetics service, so they have someone to go to for any follow-up that has a name, and so they don't feel isolated from the genetic service. And signposting to those external resources, such as SWAN UK, can be very important as well, of course. Celine: I think it's also really important to add that hope isn't necessarily lost when you don't get a diagnostic result. And in a sense, what can be really helpful is for genetic counsellors to reframe that hope, if you like. So, one thing that we talk about in our paper is that it might be useful for health professionals to ask a question such as, “In light of the new information that we now have from the whole genome sequencing result, what are you hoping for now?” So in a way, it's sort of reframing that hope, sort of giving it a different context. Lisa: Definitely, and I think one of the things as well is that, because potentially for when parents were first recruited to a study such as the 100,000 Genome specifically in this case, that it might be quite a length of time between that initial recruitment and when the actual result comes out. And of course, in that time, with the advances in genetics, it's sort of somewhat of a Pandora's box really, isn't it, in that we're almost kind of finding the information out quicker than we actually know how to process it and what it potentially means. So actually if there's a genetic counsellor available to speak to those parents, or for those parents to be signposted to somebody who can say, “Well look, since you were recruited, actually this is happening, that's happening,” or, “These research projects are happening,” personally, I can say that is going to be really helpful and handy, and would have been really useful. I just know that for myself anyway and my family, that if there was a leaflet or something that had given me a way of knowing how I could contact somebody in the future, that would be really helpful. What ways do genetic counsellors use in maintaining a delicate balance between not creating false hope but also providing meaningful support to parents? What would you say around that, Jana? Jana: I think as we've already touched on, it's that managing expectations from the outset when the test is offered. So, not generating too much hype or excitement, but setting those expectations, giving that information about the diagnostic yield. Also, informing parents that what people do experience has been described as a rollercoaster of emotions. It's normal. You might also want to explore people, not only what they're hoping for, but also the outcomes that they might be fearing, and giving them a chance to voice those, because they can be very powerful things as well. A diagnosis might not be what you want to hear, so there can be a lot of ambivalence around wanting a diagnosis when it might actually be a life limiting condition, that you didn't really want that certainty. And also helping parents to explore how not receiving a result might feel, so that they've actually rehearsed it a little bit, and where they might go to when they need a bit of extra support. So, they already know, “I go and talk to my friends, that's where I get my support from,” so that they're kind of ready for it, and that might help them with that sense of isolation, but also validating these feelings. So, it's okay, it's okay to have that dip, it's okay to feel, that it's something that many people experience. And creating a safe space for people to feel that, so if they want to talk to a professional or a friend, that those feelings are validated. And in that way, kind of with that pre-counselling really, helping parents to develop their own set of resources, so they've got those to draw on. And as you've mentioned, Lisa, it's like having your own resources also helps generate that feeling of empowerment and control. And as Celine has said, it's really facilitating parents through that passage of reframing what you're hoping for, reframing what the future looks like, if you had one picture of a future. You need to become comfortable with the future you're now looking at. Lisa: Thank you, Jana. Louise, if I can ask you really, we've already touched on the role that SWAN UK can play for parents dealing with undiagnosed rare conditions, but perhaps if you could home in on that and explain in more detail the main focus of SWAN UK, and what that can do for parent/carers. Louise: So, what SWAN UK primarily does is bring together parents who are in a similar situation. So, we have a team of amazing parent representatives, who Lisa is one, who help us shape the support that SWAN UK can provide, and really make sure that it's based on a really strong understanding of what it's like to be a parent of a child with an undiagnosed genetic condition, and an understanding of that kind of expertise that parents who have been on that journey themselves will bring. So, we have a series of Facebook groups. Some of them are for different regions, so people come into contact with other parents in their area who are going through similar circumstances. Some of them are more around age. So, you know, we have Facebook groups for parents who are waiting for a diagnosis or have got a new diagnosis, and then we have a group called SWAN Graduates, which is for children who are older and over 18, so their parents can come together and share their experiences. So, it's really to help parents be able to talk to one another, to share their experiences, to support one another, and often to ask for advice. They're often kind of practical questions about, you know, “My child needs this kind of wheelchair, has anybody been able to source that from somewhere?” “My child's having real difficulties eating at the moment, can anyone give some advice on this particular challenge?” “This thing someone else has faced, how did you approach it? Where did you reach out for support?” So, that peer to peer advice and support is really at the heart of SWAN UK. And then what we try and provide around that is access sometimes to information events, where there's particular issues that are affecting a lot of SWAN families. So, we hope over the coming year to have a series of information events targeted at families with children who don't have a diagnosis, and some of it is just trying to have social events and bring people together again. We've had, for example, an active dads group in Wales, who've been bowling and wanted to go axe throwing, and really they just want to come together with other dads who are in the same situation, and being able to talk to one another and provide emotional support to one another. So, that's kind of the nub of SWAN UK and what we do, and then alongside that, that kind of fits in with Genetic Alliance's wider goal, which is much more around campaigning for improved services. So for example, the Genetic Alliance UK team has worked really closely with commissioners in Wales, who actually commissioned the first SWAN clinic, which is in Cardiff. That was a two year pilot, to see what support could be provided both to help SWAN families get a diagnosis, but far beyond that, to make sure that the care for families who don't have a diagnosis is better joined up. And that we feel has been a real success. Again, there hasn't been a really high diagnostic yield, there have been very few new diagnoses, but the support provided to the families who are in contact with that clinic, in terms of helping them access better joined up care both from the NHS and from services more widely, has been brilliant. And we're currently working with NHS England in the UK, who are exploring an opportunity to commission two SWAN clinics in England. So, that trying to kind of improve services, and then the third aspect of that is just working generally with the new genomic medicine service alliances as they emerge across England, to try and make sure they are thinking through what support they will need to continue providing to families who've gone for whole genome sequencing in future, not through a research project like 100,000 Genomes, but just through routine clinical practice and routine clinical diagnostics, what support will they need to provide for families who go through that process and don't get an answer. And that won't change the support they will need from the NHS. It will just mean that perhaps that clinic needs to play a more active role in helping them access those services. So, all of that kind of campaigning to have better services for family who have an undiagnosed genetic condition continues as well. Lisa: So, I think one of the things really just to finish off today, is of course looking at the future. Considering advancements in technology, would you say that future reanalysis of the 100,000 Genome Project is going to yield additional insights? Celine, can I ask you to comment on that? Celine: Yes, absolutely. As we understand more about the role and function of different genes, and as new genes are added to the panels, we will definitely be able to provide a diagnosis for more parents and more families. But I think we don't yet necessarily know exactly what that reanalysis will look like, and it's not really clear yet how this will work in practice. Lisa: And Louise, would you have anything else to add to that at all really? Louise: No, I think it is just that hope for the future and kind of help for today. I think the NHS needs to be equally clear about, you know, there's some amazing investment by the UK government in genomic research, and that's brilliant and we want that to continue, but equally we want the investment to be taking place into routine clinical services and diagnostic services, so that we can talk to people both about the hope of potentially getting a diagnosis in future, but making sure that the help continues to be available for as long as they don't have a diagnosis, and that help for families who don't have a diagnosis is going to be just as important. And what we try to ask for is both real clarity around what the NHS can provide, and really clear signposting to organisations like SWAN for families that continue to not have a diagnosis. And again, just to give an equal shout out to Unique, who are able to support families who have an ultrarare diagnosis, where perhaps they're the only person in the country with that particular diagnosis, or one of a handful of families around the world. Signposting to that peer to peer support will continue to be a really important part of the process as well, so that families can help one another, learn from one another, and just give each other support that they are kind of sharing that same journey and walking alongside one another on that journey as it continues. Lisa: And bringing this podcast to a close, can I just ask you really, any final thoughts, anything that you would sum up from your experience of researching the no primary findings and where we now are today? Celine: I think the main thing for me is just to sort of make it clear to parents that a diagnosis isn't necessarily a magic wand, even though it is obviously very important to a lot of parents. But that even without a diagnosis, we still have the opportunity to manage patients' symptoms, and often a diagnosis doesn't make a substantial difference, because parents are sometimes left with a lot of uncertainties and a lot of unanswered questions. So I think, and as Louise and Jana have said before, it's really sort of on focusing what we do know, and thinking about what we can offer and what support we can provide to parents and families even without a diagnosis. Lisa: Thank you very much to our guests today, Jana Gurasashvili, Celine Lewis and Louise Fish, for joining me as we discussed the impact of a no primary findings result. If you'd like to hear more like this then please subscribe to the G Word on your favourite podcast app. Thank you for listening. I've been your host, Lisa Beaton. This podcast was edited by Mark Kendrick at Ventoux Digital, and produced by Naimah Callachand.    

Explore the life and enduring legacy of Yuri Kochiyama, a Japanese American woman whose experiences during WWII in concentration camps ignited her transformation into a civil rights icon. In this podcast episode, hosts Koji Steven Sakai and Michelle Malizaki delve into the intimate thoughts and profound adversities captured in Yuri's diary. From tales of community resilience within the camps to discussions on identity and patriotism, this episode honors Kochiyama's empathetic activism and challenges us to reflect on the true meaning of citizenship. Join us in paying tribute to a beacon of the civil rights movement and the resilient spirit that defines the Japanese American experience. ABOUT OUR PERFORMERSierra is a standup comic, writer, and actor. She recently shot her first hourlong standup special with Comedy Dynamics and can be seen playing Evangeline on Mindy Kaling's The Sex Lives of College Girls on Max. In the past, she was part of the main cast of The G Word with Adam Conover on Netflix and voiced characters for Disney's Raya and the Last Dragon. She has also written for shows like Exploding Kittens (Netflix), Close Enough (Max), Earth To Ned (Disney+), and Eureka! (Disney+).LINKShttps://www.nps.gov/people/yuri-kochiyama.htm JANM Online collection link for Yuri Kochiyama:https://janm.emuseum.com/groups/yuri-kochiyama--mary-nakahara--collection/resultsABOUT USWelcome to "Japanese America," where the Japanese American National Museum unveils captivating stories that add a Nikkei slant to the American narrative. In each episode, we explore the unique experiences, challenges, and triumphs of Japanese Americans, illuminating their rich contributions to the mosaic of American life. From historical milestones to contemporary perspectives, join us for an insightful journey through the curated collection of the Japanese American National Museum, showcasing the diverse tapestry of a community that has shaped the American story in extraordinary ways.  Welcome to "Japanese America," where each story unfolds like a chapter in a living history book.For more information about the Japanese American National Museum, please visit our website at www.janm.org. CREDITSThe music was created by  Jalen BlankWritten by Koji Steven SakaiHosts: Michelle Malizaki and Koji Steven SakaiEdited and Produced by Koji Steven Sakai in Conjunction with the Japanese American National Musem

This Episode we begin our new Series: Introduction to a Modern Class of Casting Visionaries with our dear friend Lindsey Weissmueller! Lindsey Weissmueller is a film and television casting director with over 15 years of exceptional and award-winning work in the entertainment industry. Lindsey's latest feature film, THE PERSIAN VERSION, won the coveted Audience Award in the US Dramatic Competition at Sundance 2023, was bought by Sony Pictures Classics and is currently available oon Amazon. She also cast A24's very first musical feature, DICKS: THE MUSICAL starring Nathan Lane, Megan Mullally, Bowen Yang and Megan Thee Stallion also available on Amazon. Lindsey's Sony thriller, MISSING (starring Storm Reid and Nia Long), was released theatrically worldwide earlier this year. She was nominated for an Artios Award this year for her work casting Netflix's THE G WORD for Barack and Michelle Obamas' production company Higher Ground. Other recent credits include: Netflix's Emmy-nominated comedy series SPECIAL (starring Ryan O'Connell), Sony's SEARCHING (starring John Cho), Amazon Studios' AVA (starring Jessica Chastain, Colin Farrell, Common, John Malkovich), HULU's PLUS ONE (starring Maya Erskine and Jack Quaid), Tru TV's comedy series ADAM RUINS EVERYTHING (starring Adam Conover) and Blumhouse's street magic thriller SLEIGHT (Sundance 2016) which she co-cast with Jessica. You can next see Lindsey's work in Netflix's comedy feature PLAYERS (starring Gina Rodriguez, Damon Wayans, Jr., Tom Ellis) premiering in 2024 and HULU's horror comedy APPENDAGE streaming now. In this episodes we dive into: How Jessica & Lindsey know each other Lindsey discusses her journey into casting and those who she came up under How she continues to be a glass half full person! What made her feel ready to go out on her own and how the reality compared to what she thought it would be Her year of "yes!" Lindsey's casting process Talent crushes How does Lindsey see the future of casting and how she wants to leave her mark on casting Resources: Lindsey's Instagram Lindsey's IMDB ──────────────────────────── ⁠⁠⁠⁠⁠Stay Tuned with Tipsy Casting on IG⁠⁠⁠⁠⁠ Watch the ⁠⁠⁠⁠⁠Tipsy Casting YouTube Channel⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠Follow Jessica ⁠⁠⁠⁠⁠ & ⁠⁠⁠⁠⁠Follow Jenn ⁠⁠⁠⁠⁠ Learn More About ⁠⁠⁠⁠⁠Jess ⁠⁠⁠⁠⁠& ⁠⁠⁠⁠⁠Jenn's⁠⁠⁠⁠⁠ Casting Journeys  ⁠⁠⁠⁠⁠Get Casting Life Away Merch here!⁠ --- Send in a voice message: https://podcasters.spotify.com/pod/show/tipsycastingpodcast/message

NYC Comedian Freddy G stops in to discuss South Africa's ICJ case, air strikes on Yemen, the State Department's secret plan for postwar Gaza and being an Anti-Zionist Jew.

This week, we revisit V's birthday episode! As a gift to their listeners, V invited one of their favorite comedians, Adam Conover, on the show to talk about his Netflix special, “The G Word.” Adam went from ruining everything from weddings to airlines, to investigating the U.S. government. He'll talk about getting access to some of the most guarded government buildings and taking viewers behind the scenes to build trust. We'll hear about how the country regulates food and why we're not subsidizing more fruits and vegetables. Plus, how the government has complete control over the money supply and why PPP loans benefited the wealthy instead of the small businesses they were intended for.  Follow Adam @adamconover on Twitter, Instagram, and TikTok.  Keep up with V on TikTok @underthedesknews and on Twitter @VitusSpehar. And stay up to date with us on Twitter, Facebook, and Instagram at @LemonadaMedia.  Click this link for a list of current sponsors and discount codes for this show and all Lemonada shows go to lemonadamedia.com/sponsors. Joining Lemonada Premium is a great way to support our show and get bonus content. Subscribe today at bit.ly/lemonadapremium. See omnystudio.com/listener for privacy information.

Adam Conover felt out of place in a family of scientists, but his decision to pursue a philosophy degree actually played into three major aspects of his adult life: Standup comedy, his educational television shows Adam Ruins Everything and The G Word, and civic engagement. Adam talks with Marc about what led him to comedy, why he made TV shows that helped explain the world, and what it's like on the front lines of the WGA strike as part of union leadership. Sign up here for WTF+ to get the full show archives and weekly bonus material! https://plus.acast.com/s/wtf-with-marc-maron-podcast. Hosted on Acast. See acast.com/privacy for more information.

The G-word never fails to shut people down. Every time I use the word Goals, I see eyes glaze over and energies bottom out. We've talked about it ad nauseum, and while people want to set and achieve goals, the work of doing that just isn't fun. In this episode, I share why previous goal setting tools I've taught and used no longer work for me. Or have just become staid and boring. And how planning an anniversary trip, plus finally getting to the gym and sticking with it, created this completely new approach to creating what you want. If you want to figure out how to flip that switch in your mind from “this would be nice” to “I am doing this,” this is the episode you need. Get the full show notes and more information here: https://www.amylatta.com/191

Guilt is like a heavy backpack strapped to your shoulders, filled with stones of past actions and regrets. Carrying it around weighs you down, making each step feel burdensome. It tugs at your every movement, preventing you from moving forward freely. Only by acknowledging and unloading the stones of guilt can you lighten your load and walk with a renewed sense of freedom and self-compassion.  

Interning at KISW, Cathy Faulkner was barely old enough to buy cigarettes. The day Nirvana released "Nevermind", she became KISW Music Director. As Pearl Jam recorded "Ten", Cathy had fallen asleep on the studio couch.Bob Spike and Joe spend over an hour with Cathy on the "behind the scenes" curation of musicians, bands, on-air talent and how the 'Seattle Sound' came to be. A great conversation! Spike is tearing it up these days on KIRO Mid Days with his sparring partner (and fast rising talent) Jack Stine. And Downtown Joe is mentoring the Broadcasters of tomorrow at KMIH. And none of this could have happened at all for any of us without YOU. Thanks for listening for all those years. ** Check out Cathy on the Sound-Off Podcast episode, "KISW, Seattle and the G-Word", at: https://www.soundoffpodcast.com/cathy-faulkner Visit Cathy's social media links, at: Facebook: https://www.facebook.com/LateCathyFaulkner/about Instagram: https://www.instagram.com/mecathyfaulkner ** Check out Spike on KIRO, live or on-demand, respectively at: https://mynorthwest.com/category/kiro-radio https://podcasts.apple.com/us/podcast/kiro-nights-with-spike-oneill/id1300717375 ** Check out 'Bob's Garage' for some of the live recordings mentioned, at: https://bobrivers.com/category/bobs-garage/?ref=p4FqKCcI9FA #seattlebands #seattlemusicscene #seattlemusic #seattlesound #grunge #90smusic Listening to the audio on Podcast Service? See the Video at: - BobRivers.com - https://bobrivers.com/thebobriversshow_20230510 or- YouTube - https://www.youtube.com/watch?v=p4FqKCcI9FA --> ( Please 'Like' and 'Subscribe'

In the fall of 2019, reporter Faith E. Pinho received a tip from Paulina Stevens. Paulina said she had grown up in an insular Romani community in California, where she was raised to be a wife, mother and fortuneteller — until she decided to break away. This opens the door to a story spanning multiple continents, hundreds of years and complex, even metaphysical, realities.Check out photos and more information about this episode. Read the episode transcript. Dive deeper: Our Romani cultural consultant's op-ed describing how her heritage fits into her own life.

John Stossel. 10 Segments.   John Stossel Electric Cars: Inconvenient Facts, Part One Electric Cars: Inconvenient Facts, Part 2 Myths About Hurricanes—Lessons From Hurricane Ian & Florida Students Finally Winning The School Choice Fight Adam Carolla on Free Speech, Cancel Culture, AOC and Covid Hysteria. Obama's Show “The G Word” Is Big Government Propaganda Megyn Kelly On Media Bias This Thanksgiving, Say Thank You to "Private Property” Classic Stossel: Makers vs Takers Classic Stossel: What's Great About America--Starting a Business   Electric Cars: Inconvenient Facts, Part One John Stossel 752K subscribers 1,031,606 views Nov 1, 2022 Politicians and activists who want all cars to go electric are guilty of magical thinking. Electric car sales are up 66% this year. President Biden says the future is "electric… and there's no turning back.” California and New York are banning sales of new gas-powered vehicles. We're told they'll help us use less oil. But most of what politicians, activists, and electric car sellers say about electric cars is just wrong. In this video, and a second one coming soon, I show you 5 inconvenient facts about electric cars. ———— To make sure you see the new weekly video from Stossel TV, sign up here: https://www.johnstossel.com/#subscribe ————   Electric Cars: Inconvenient Facts, Part 2 https://youtu.be/ptI6BRVC1Kw John Stossel 752K subscribers 909,130 views Nov 15, 2022 Activists and politicians love electric cars so much so that they want to take away your other choices But their green dream is just a fantasy. Electric cars are cool. I'd buy one if I could only get the Tesla dealer to call me back. But when it comes to the environment, electric cars aren't even close to what activists and politicians promise. In this video, I continue where part I left off, with 3 more inconvenient facts about electric cars. Part 1 is here: https://youtu.be/z2HneqfZGsM  ———— To make sure you see the new weekly video from Stossel TV, sign up here: https://www.johnstossel.com/#subscribe ————   Myths About Hurricanes—Lessons From Hurricane Ian & Florida https://youtu.be/7uqGohw6arA John Stossel 752K subscribers 289,626 views Oct 4, 2022 A lot of what the media and politicians tell us about hurricanes is just WRONG. ———— To make sure you see the new weekly video from Stossel TV, sign up here: https://www.johnstossel.com/#subscribe ———— Hurricane Ian destroyed parts of Florida. As always, we're told that only FEMA can provide relief. That storms are worse because of climate change. That “price gouging" is evil. That federal flood insurance is necessary, and helps poor people. Little of that is true. Until we learn the myths about storms, we'll make the same costly mistakes again and again.   https://youtu.be/FfigsiTrz5s Students Finally Winning The School Choice Fight John Stossel 752K subscribers 235,466 views Sep 27, 2022 Dozens of states expanded school choice in the last two years, allowing more students to leave government-run schools. But David Walrod, the president of a teachers' union in Fairfax, Virginia, says the new school choice programs are harmful. We debate. Many kids have good reasons to leave government-run schools. Such schools often needlessly shut down for Covid, and stayed closed for two years. Some indoctrinate kids. Many leave bad teachers on the job. Many spend absurd amounts of money. (Fairfax, Virginia, schools spend more than $300k per classroom.) But Walrod says that school choice will create too many different schools, and duplicate wasteful bureaucracies. You can watch our debate in the video above. ———— To make sure you see the new weekly video from Stossel TV, sign up here: https://www.johnstossel.com/#subscribe ————   https://youtu.be/iYfh4Pua06A Adam Carolla on Free Speech, Cancel Culture, AOC and Covid Hysteria. John Stossel 752K subscribers 295,203 views Sep 20, 2022 Millions of people listen to Adam Carolla's podcasts, attend his live shows, and read his books. He once hosted hit shows like “Loveline" and "The Man Show.” Over the years, Carolla's comedy has caused controversy. Now his opinions make people angry. “If AOC were fat and in her 60's,” Carolla says, “no one would listen to her." That comment drove leftists crazy. But Carolla won't back down. When critics demand apologies, he tells me, they really want power. "They want you to apologize,” Carolla says, "because they want dominion over you. And once you apologize, they just keep coming back.” He gives examples in his new book, “Everything Reminds Me of Something: Advice, Answers…but No Apologies." ———— To make sure you see the new weekly video from Stossel TV, sign up here: https://www.johnstossel.com/#subscribe ————   https://youtu.be/ilq-oUBpJU4 Obama's Show “The G Word” Is Big Government Propaganda John Stossel 752K subscribers 346,757 views Oct 18, 2022 Did you hear? Netflix paid Barack and Michelle Obama millions of dollars to produce movies and TV shows. Their latest documentary series, “The G Word,” is astoundingly stupid. “The G Word” is hosted by comedian Adam Conover. President Obama approved it, and appears in it sometimes. But instead of using his time with the president for something valuable, Conover wastes it on silly stunts like making sandwiches. Instead of doing honest reporting, Obama's 6-part series pushes big government propaganda. Give me a break. I debunk it. ———— To make sure you see the new weekly video from Stossel TV, sign up here: https://www.johnstossel.com/#subscribe ————   https://youtu.be/WdftX2aENa8 Megyn Kelly On Media Bias John Stossel 752K subscribers 207,387 views Nov 29, 2022 Megyn Kelly is well known for working at Fox News & NBC. Now she's her own boss, and feels free to call out bias wherever she sees it. Today, big media has an agenda. It's not just, "give the news." Fox News and a few others spin right. Almost everyone else spins left. That's why I'm glad we have independent journalists like Megyn Kelly. We worked together at Fox, and then she went to NBC. She felt pressure from her bosses to stick to a certain agenda. Not pleasing the network got her fired from NBC. Now she has her own podcast, The Megyn Kelly Show. “I'm totally uncancellable,” she tells me. “That was my only mission in coming back into our business. I didn't want a corporate overlord.” ———— To get our new weekly video from Stossel TV, sign up here: https://www.johnstossel.com/#subscribe ————   https://youtu.be/s4XcbM6nkBs This Thanksgiving, Say Thank You to "Private Property” John Stossel 752K subscribers 142,820 views Nov 22, 2022 Did you know that the pilgrims almost starved after they arrived at Plymouth Rock? That's because they were forced to farm "collectively." The corporation that funded the expedition said, "grow food together. Divide the harvest equally." This is a terrible idea. It creates what economists call the "tragedy of the commons." When you share property and the results of your work, people farm until the land is barren, don't work as hard, or steal food from others. Young people from Students For Liberty take part in an experiment to demonstrate this "tragedy of the commons." It shows the solution is private property, which is what saved the pilgrims. Governor William Bradford finally decided to "assign each family a parcel of land." Once the pilgrims had property rights, they became much more productive and brought in huge harvests -- which they were then able to share with the Indians. So this Thanksgiving feast, don't forget to say "thanks, private property!" -------- Don't miss a single video from Stossel TV. Sign up here: www.johnstossel.com/#subscribe-form ---------   https://youtu.be/u8ms8fdv7OI Classic Stossel: Makers vs Takers John Stossel 752K subscribers 219,375 views Oct 21, 2022 Some people say, either you're a maker … or a taker. And today makers and takers are battling for America's soul. Arthur Brooks says "It's a battle because we're deciding on our culture... Because the government is threatening to take us from a maker nation into taker nation status." He points out "60% of Americans take more out of the public finance system than they pay in. They get more in public services than they pay in taxes. " Star Parker was a taker. She lived off welfare for 7 years. She says the welfare bureaucracy encouraged her to be irresponsible… and stay dependent. She says "It's so much easier to take than to make. I never even thought about it. I think that that's one of the greatest tragedies of becoming a taker is you don't think about that somebody else had to make this." A Classic Stossel from 2009.   https://youtu.be/n0jIV3cIw74 Classic Stossel: What's Great About America--Starting a Business John Stossel 752K subscribers 45,931 views Nov 25, 2022 One of the things that's great about America is its entrepreneurial spirit. America is a good place to do business. More than almost any other nation, America both encourages and rewards creativity, risk-taking, and the entrepreneurial spirit. In this video, I start my own “Stossel Store." The business is something of a failure, which is also part of what's great about America: you can try here and fail and still try again. A Classic Stossel from 2010. ———— To make sure you see the new weekly video from Stossel TV, sign up here: https://www.johnstossel.com/#subscribe ————   HELP ACU SPREAD THE WORD!  Please go to Apple Podcasts and give ACU a 5 star rating. Apple canceled us and now we are clawing our way back to the top. Don't let the Leftist win. Do it now! Thanks. Forward this show to friends. Ways to subscribe to the American Conservative University Podcast Click here to subscribe via Apple Podcasts Click here to subscribe via RSS You can also subscribe via Stitcher FM Player Podcast Addict Tune-in Podcasts Pandora Look us up on Amazon Prime …And Many Other Podcast Aggregators and sites   Please help ACU by submitting your Show ideas. Email us at americanconservativeuniversity@americanconservativeuniversity.com Please go to Apple Podcasts and give ACU a 5 star rating. Apple canceled us and now we are clawing our way back to the top. Don't let the Leftist win. Do it now! Thanks.

For today's episode, I'm bringing multi-award-winning director, producer and executive film producer, Marc Smolowitz, back on the podcast. It was four years ago that Marc first came on the show to talk about a movie he was working on called The G Word, a feature-length documentary about giftedness that asks the urgent equity question – In the 21st century, who gets to be Gifted in America and Why? Marc is currently working on the post-production of the movie so I wanted to invite him back to talk about what the last 4 years have been like in the giftedness community. What has changed? What are the things we need to be looking out for and what initiatives have been created?AND, I also wanted this show to be a part of celebrating the 2nd annual Gifted / Talented / Neurodiversity Awareness Week, a week-long celebration created by Marc and which is happening this very week. The theme for this year's awareness week is Gifted JOY, and I really love the idea of connecting the concept of joy and empowerment to the conversation surrounding giftedness.Marc Smolowitz is a multi-award-winning director, producer, and executive producer who has been significantly involved in 50+ independent films. His films have been screened at the world's top-tier festivals such as Sundance, Berlin, Venice, Tribeca, Locarno, Chicago, Palm Springs, SF FILM, AFI Docs, IDFA, and DOC NYC, among others. In 2009, Marc founded 13th Gen, a San Francisco-based company that works with a dynamic range of independent film partners globally to oversee the financing, production, post-production, marketing, sales, and distribution efforts of a vibrant portfolio of films and filmmakers. In 2022, Marc is currently in post-production on THE G WORD – a feature-length documentary about giftedness that asks the urgent equity question – In the 21st century, who gets to be Gifted in America and Why?Things you'll learn from this episodeHow the conversation surrounding giftedness and neurodivergence have changed in recent years and how those have impacted the direction fo The G WordWhy it's so important to include the concept of neurodivergence in the broader conversation about gifted and talented populationsHow we can intentionally use joy to explore and ease pain/trauma narratives, especially for gifted and neurodiverse populationsHow parents can lean into the joy of raising their gifted children and get involved in celebrating GTN Awareness WeekResources mentioned:13th Gen, Marc's production companyThe G Word FilmG/T/N Awareness WeekSupporting Black, Gifted Students with Dr. Joy Lawson Davis (Tilt Parenting podcast interview)Support the showConnect with Tilt Parenting Visit Tilt Parenting Take the free 7-Day Challenge Read a chapter of Differently Wired Follow Tilt on Twitter & Instagram

Become an exclusive member at https://tmgstudios.tv This week we have the man who ruins everything, Adam Conover, on the show. The trio discuss how big media mergers ended Adam Ruins Everything, the importance of local political action, and the terror of the big billionaire's club. Including a quick dive into Adam's newest show The G Word on Netflix. Get 20% off + free shipping sitewide with the code TRILL at https://vincerocollective.com https://public.com/trill - A free stock once you open an account & up to 10,000 when you transfer your account from another brokerage. Cash bonus terms can be found at https://public.com/trill Go to https://shopify.com/trill for a FREE trial and get full access to Shopify's entire suite of features Get 25% Off at https://trueclassic.com with code TRILL If you listen on Apple Podcasts, go to: https://apple.co/trillionaire SUBSCRIBE to Trillionaire Mindset at https://www.youtube.com/trillionairemindset Trillionaire Highlights Channel: https://www.youtube.com/TrillionaireMindsetHighlights Trillionaire IG: https://www.instagram.com/trillionairepod Trillionaire Twitter: https://twitter.com/trillionairepod TMG Studios YouTube: https://www.youtube.com/tinymeatgang BEN https://www.instagram.com/bencahn/ https://twitter.com/Buncahn EMIL https://www.instagram.com/emilderosa/ https://twitter.com/emilderosa *DISCLOSURE: THE OPINIONS EXPRESSED IN THIS VIDEO ARE SOLELY THOSE OF THE PARTICIPANTS INVOLVED. THESE OPINIONS DO NOT REFLECT THE OPINIONS OF ANYONE ELSE. THIS IS NOT INVESTMENT ADVICE. THE VIEWER OF THE VIDEO IS RESPONSIBLE FOR CONSIDERING ANY INFORMATION CAREFULLY AND MAKING THEIR OWN DECISIONS TO BUY OR SELL OR HOLD ANY INVESTMENT. SOME OF THE CONTENT OF THIS VIDEO IS CONSIDERED TO BE SATIRE AND MAY NOT BE CONSIDERED FACTUAL AND SHOULD BE TAKEN IN SUCH LIGHT. THE COMMENTS MADE IN THIS VIDEO ARE FOR ENTERTAINMENT PURPOSES ONLY AND ARE NOT MEANT TO BE TAKEN LITERALLY.*

So much of public health revolves around collective action — that is government working on our behalf to do things like fund biomedical research, regulate polluting factories, or clean our water. But what happens when we lose trust in government? Adam Conover is a comedian and host of the podcast Factually, as well as the new Netflix series “The G Word.” He joined Abdul to talk about how he uses comedy as a tool for truthtelling, what he learned about our public health system, and what it'll take to fix it.

Today, I sit down with comedian and Adam Conover.  We talk about what video games he's been playing lately, post pandemic touring, the entertainment industry, politics and how Adam is Gettin' Better!   Follow Adam Conover Instagram: www.instagram.com/adamconover/ Twitter: twitter.com/adamconover     Follow me on my Twitch channel for comedy nights, video games with friends, and more! https://www.twitch.tv/ron_funches    Become a Patron at http://www.patreon.com/gettinbetterwithron and get perks like personal affirmations, shoutouts, hand written letters, tickets to my shows, and much more!   We have an Instagram! Give us a follow for classic clips and positive affirmations at @gettinbetterpodcast   For all tour dates and merch go to http://www.ronfunches.com   Don't forget to hit subscribe for weekly podcasts!   This episode is brought to you by Babbel. Go to  Babbel.com/funches for up to 55% off.  This episode is also brought to you by Better Help. Get 10% off your first month at http://www.betterhelp.com/funches 

It's easy to forget how even the smallest roles of the government can affect our lives in profound ways. The G Word is a comedy-documentary series that explores just that. On the show, the surprising ways the US government finds its way into everyday life are examined through deep dives into topics like bank regulation, the Food and Drug Administration, the National Weather Service and more. Adam Conover hosts The G Word. Throughout the series Adam covers the government's triumphs, but also its failures. Adam talks with us about The G Word, his previous series Adam Ruins Everything, and the journey to find his voice as a comic.

Comedian Adam Conover of Adam Ruins Everything and The G Word stops by to share his fountain of knowledge with Brian. They discuss everything from whether alpha males exist to how a punchline is born - before Adam proceeds to ruin perfectly good topics like puppies and The Office.See omnystudio.com/listener for privacy information.

From GPS systems, to weather forecasts, to the food we consume, the U.S. government plays a role in virtually every facet of our lives. What happens behind the scenes and how do these background actions impact our lives, good and bad? Seeking the answers to those questions is the project of “The G Word,” a Netflix miniseries executive produced by former President Barack Obama and hosted by Adam Conover. Loosely based off of “The Fifth Risk: Undoing Democracy” by Michael Lewis, the six-part documentary explores the triumphs and failures of the government and how we might be able to change it. Conover joins WITHpod to discuss his creative process, maintaining editorial independence while working with Obama, his experiences getting rarely granted insider access of federal agencies and more.

Comedian, host, writer, and activist Adam Conover joins Jameela this week to encourage us all in the ways local government matters. They discuss the importance of - and Adam's involvement in - local politics, how to access your political power, why LA's upcoming mayoral election is so important, the Supreme Court's impact and how we got here, the homelessness problem and ways to fix it, and more. Check out Adam Conover's show - The G Word - on Netflix! Listen to Adam's podcast - Factually - wherever you get your podcasts. Follow Adam on Instagram and Twitter @adamconover   You can find transcripts for this episode here: https://www.earwolf.com/show/i-weigh-with-jameela-jamil/I Weigh has amazing merch - check it out at podswag.com Jameela is on Instagram and Twitter @JameelaJamil And make sure to check out I Weigh's Twitter, Instagram, and Youtube for more! 

Andy talks with comedian Adam Conover about his Netflix show, "The G Word," where he partnered with President Obama to educate Americans on how the federal government works and what needs fixing within it. From public libraries to FEMA, they discuss how comedy can help Americans understand, appreciate, and properly scrutinize the agencies working for us everyday. Keep up with Andy on Twitter @ASlavitt. Follow Adam Conover on Twitter @adamconover. Joining Lemonada Premium is a great way to support our show and get bonus content. Subscribe today at bit.ly/lemonadapremium.  Support the show by checking out our sponsors! Click this link for a list of current sponsors and discount codes for this show and all Lemonada shows: https://lemonadamedia.com/sponsors/ Check out these resources from today's episode:  Watch “The G Word” on Netflix: https://www.netflix.com/title/81037116 Check out Adam's tour dates: http://www.adamconover.net/tourdates/ Find vaccines, masks, testing, treatments, and other resources in your community: https://www.covid.gov/ Order Andy's book, “Preventable: The Inside Story of How Leadership Failures, Politics, and Selfishness Doomed the U.S. Coronavirus Response”: https://us.macmillan.com/books/9781250770165 Stay up to date with us on Twitter, Facebook, and Instagram at @LemonadaMedia.  For additional resources, information, and a transcript of the episode, visit lemonadamedia.com/show/inthebubble. See omnystudio.com/listener for privacy information.

"Adam Ruins Everything" host Adam Conover discusses his new (Obama-produced!) Netflix limited-run series look at our federal government, "The G Word".

Ira and Louis discuss their memories of 90s daytime television, the chokehold Top Gun has on men of a certain age, Ray Liotta's career, Bradley Cooper as Leonard Bernstein, Kate Bush chart resurgence, and more. Plus, Louis obsesses over Mary Steenburgen and Adam Conover joins to discuss his new series The G Word, comedy as education, and giving notes to President Obama.___With our constitutionally protected right to abortion under attack, abortion funds are working nonstop to make sure people can still access (and afford) abortion.Visit votesaveamerica.com/roe to learn more, donate, and take action. 

In episode 1252, Miles and guest co-host Matt Lieb are joined by comedian and host of The G Word, Adam Conover to discuss… The continued disconnect between legislators and health workers, Freudian Slip of the Century, TOLD YOU SO MOM - video games INCREASE intelligence? And more! The continued disconnect between legislators and health workers Freudian Slip of the Century TOLD YOU SO MOM - video games INCREASE intelligence? LISTEN: Golden Green by Emma-Jean Thackray See omnystudio.com/listener for privacy information.