Imperfect Heart is a podcast designed for, hosted by and recorded with those affected by or involved with the care and support for those with the birth defect of a Myocardial Bridge. Interviews with healthcare professionals, support professionals and those navigating their way through the often challenging process of diagnosis and treatment are the focus of the content. It’s their stories that are meant to inform, educate and even entertain in an effort to insure hope for the listener that what they are experiencing is real, that they are not alone and that there is hope for relief from the varied symptoms of a Myocardial Bridge. The host, Jeff Holden, has his own story to tell from symptom to diagnosis to treatment thus giving him insight and empathy as well as experience in the process of advocating for the patient. The program also seeks to make the healthcare industry more aware of the real symptoms of Myocardial Bridges with an aim to eliminate the gaslighting that is so prevalent around this defect and directly address the reality that Myocardial Bridges may be responsible for many more deaths from sudden cardiac arrest than previously thought. Early diagnosis and treatment could not only improve but may actually save lives when properly applied. More information can be found on the podcast website, www.myimperfectheart.com.
Sacramento, California
Navigating the intricate journey of living with a myocardial bridge is no small feat. This episode, I open up about the emotional rollercoaster of coping with myocardial bridges and stress the undeniable importance of patience, understanding, and self-advocacy. Heart procedures are anything but predictable, and while some, like the recently unroofed, find hope in successful outcomes, each person's path is uniquely challenging.Let's continue to build a supportive network for those affected by myocardial bridges, underscoring the power of shared stories and experiences. No one should feel isolated on this path, and I encourage you to join the community of those who have shared their stories on the podcast. If you're aware of doctors that might make a great guest, please share their contact information with me as well. I'll connect with them. Strengthening our collective resolve through awareness, positivity, and gratitude we'll continue to push the pace of getting this disease recognized as symptomatic and life threatening. Together we can foster hope and understanding in our community.You can email me directly at jeff@hearmenowstudio.comYou can find the interview with Dr. Ronald Hoffman on the "Intelligent Medicine" website HERE
Could you be one of the tens of thousands of people unknowingly living with a myocardial bridge? Or worse yet, knowingly living with the condition and not having it recognized as a potentially symptomatic, even life threatening, condition? My guest today is another local acquaintance. A friend of a friend. An unbelievably close association to yet another myocardial bridge patient. Janie Desmond Ison and I are going to unpack the startling statistic that while a quarter of the population may have myocardial bridges, only a small fraction are diagnosed as symptomatic. This episode challenges prevalent misconceptions, shares the journey of symptoms often dismissed, and highlights the power of awareness in seeking proper medical attention. Through her story, we aim to connect with those who might feel alone in their struggle and encourage them to pursue the support they need, knowing this is yet another example of the condition that may be similar to what you're facing.Join us as we follow an individual's incredible journey from experiencing mild symptoms like shortness of breath and palpitations to receiving a life-changing diagnosis of a myocardial bridge and an uncommon solution. We discuss managing this condition amidst complications like low blood pressure and fatigue due to treatments from beta blockers. The narrative sheds light on navigating unexpected health issues and the emotional and physical challenges of making complex medical decisions. We emphasize the vital importance of trust in healthcare professionals and explore the paths available for effective management and recovery.Our conversation also offers a hopeful glimpse into life after heart surgery, focusing on recovery's emotional and physical hurdles. The critical role of cardiac rehabilitation, peer support, and the need to reassess life priorities post-surgery are discussed. We celebrate advancements in surgical techniques and the necessity of advocating for one's heart health by staying vigilant about symptoms. By sharing these stories of resilience and recovery, we hope to inspire and reassure listeners facing similar challenges, highlighting the strength found in community and support networks.For more information and details visit the website HERETo purchase the book, "My Imperfect Heart: Stories of Myocardial Bridges" find it at Amazon.com or in this link. Chapter Summaries(00:00) Myocardial Bridge Awareness and DiscussionMyocardial bridges are often undiagnosed, causing frustration and symptoms like shortness of breath and heart attack-like sensations.(04:57) Journey With Myocardial Bridge DiagnosisPersonal journey of health challenges, diagnosis of myocardial bridge, managing condition with low blood pressure and fatigue.(19:58) Navigating Post-Surgery Complications and RecoveryA heart surgery journey highlights the importance of clear communication, informed decision-making, and navigating post-operative challenges.(35:02) Navigating Life After Heart SurgeryEmotional and physical challenges of heart surgery, importance of support and rehabilitation, and need for proactive health management.(42:10) Advocating for Your Heart HealthExploring heart surgery complexities, including myocardial bridges and evolving treatment options, and the importance of awareness and research.(50:47) Sharing Stories of Heart HealthAcknowledging and addressing heart health issues, sharing personal experiences, and emphasizing the importance of being proactive.
Can myocardial bridges be more than just incidental findings in cardiac diagnostics? Join us as we unravel this complex topic with Dr. Khaled Ziada from the Cleveland Clinic. You'll gain a deep understanding of how myocardial bridges, often dismissed as non-significant, can impact blood flow, especially when factors like endothelial dysfunction and coronary spasms are involved. Listen in to discover the pivotal role of provocative testing in determining when surgical intervention is truly necessary.We discuss the complex techniques utilized in identifying and evaluating myocardial bridges. From CT scans to angiograms and intravascular ultrasounds, Dr. Ziada walks us through the tools that help pinpoint these bridges with a degree of precision. He also elaborates on the use of dobutamine provocation to assess arterial compression and simulate stress conditions, which can reveal underlying ischemic issues. This comprehensive diagnostic approach is crucial for tailoring surgical and medical treatment strategies to the unique needs of each patient.Finally, we explore the often-underestimated challenges of treating endothelial dysfunction and microvascular disease post-surgery. Dr. Ziada emphasizes the importance of personalized medical therapies and lifestyle interventions in managing these conditions effectively. We also get a glimpse of the exceptional care model at Cleveland Clinic, where patients receive tailored support, whether through virtual or in-person consultations. Collaboration is vital between patients and physicians to enhance quality of life and stability in managing these intricate cardiac conditions and I found Dr. Ziada to have wonderful sense of concern for the well-being of those he works with.You can learn more about the Cleveland clinic HERE.You can email Dr. Ziada directly at ziadaK@ccf.orgChapters(00:00) Myocardial Bridges and Surgery Considerations(06:36) Identification and Evaluation of Myocardial Bridges(16:35) Endothelial Dysfunction and Medical Treatment(28:33) Microvascular Dysfunction and Treatment Options(35:02) Microvascular Dysfunction and Patient Care
What if the symptoms of heart disease are present, but the usual suspects aren't to blame? This intriguing question sets the stage for my conversation with Dr. Samit Shah, as we dive into the complex world of ischemia with non-obstructive coronary arteries (INOCA). Dr. Shah shares his groundbreaking work on invasive coronary function testing, a crucial development in the past decade that helps us understand symptoms like chest pain and shortness of breath without coronary blockages. DISCOVER ANOCA program is creating standardized protocols for provocative testing, ensuring that patients receive precise diagnoses and effective care.Our discussion takes a closer look at the nuanced challenges of diagnosing and treating myocardial bridging, vasospasm, and microvascular dysfunction. With a compelling case study, we illustrate how provocative testing can identify the root causes of symptoms, leading to non-surgical treatment paths. Dr. Shah introduces the Discover Inoka study, which standardizes the use of intravascular imaging for myocardial bridges. By establishing these testing protocols, the medical community is better equipped to treat such conditions with newfound enthusiasm.As we wrap the conversation, we confront the ongoing challenges and future opportunities in making provocative testing widely accessible. The importance of understanding conditions before major interventions and the role of the Microvascular Network in connecting patients to specialized care are emphasized. We also spotlight advancements in studying myocardial bridging, where surgical unroofing is now tracked in clinical trials, offering unprecedented insights into patient outcomes and enhancing cardiac care. Dr. Shah's insights are driving forward a crucial conversation on improving diagnoses and offering hope to patients with challenging cardiac conditions.CHAPTER TIMESTAMPS(00:00) Discover ANOCA Clinical Trial Overview(08:41) Advance in Diagnosis and Treatment(14:07) Improving Access to Provocative Testing(27:24) Myocardial Bridging Clinical Trial OutcomesDiscover INOCA clinical trials application and information is available HERE.For more information about myocardial bridging and microvascular testing, visit the microvascular network, HEREWhite paper on chest pain. American Heart Assochttps://www.ahajournals.org/doi/10.1161/CIR.0000000000001029https://www.microvascularnetwork.com/https://www.jscai.org/article/S2772-9303(24)01512-6/fulltexthttps://www.jscai.org/article/S2772-9303(25)01048-8/fulltext
What happens when a fit and active lifestyle is interrupted by an unexpected health condition? Join me as I explore the profound journey of Mark Davis, one of my most dear friends, as he discovers something he, nor I, would have ever expected or suspected he might have — a myocardial bridge. Clearly MB's can affect anyone, regardless of their health, race gender or ethnicity. Experience the emotional highs and lows Mark encounters while seeking a diagnosis. Together, we'll unpack the frustrating reality of navigating a medical maze, where clear answers feel elusive and symptoms persist despite being told his heart was healthy. Many of you are familiar with this journey. This crazy narrative underscores the importance of resilience and determination in the face of medical uncertainty. Here's a chance to learn about the critical role of community and support systems in overcoming health challenges. Mark shares his personal story, highlighting the comfort and strength he found in close friendships and online communities. Discover the power of connecting with others who understand and share similar experiences, especially when facing a condition that's often under-recognized in the medical world. This episode brings hope and inspiration, as Mark expresses gratitude for the unwavering support he's received and offers insights into how persistence and self-advocacy can pave the way for better health outcomes. We'll continue Mark's journey as he progresses to his provocative testing and eventual choice of what his medical decision will be.
IMPERFECT HEART: STORIES OF MYOCARDIAL BRIDGES... THE BOOK! You can now find it on amazon by clicking on the link HERE. Share it with your doctor, your cardiologist or anyone interested in learning a little more about our condition. I hope you can use it to your advantage to get the story told that Myocardial Bridges are real and they do cause symptoms. Let's use the book as a tool to educate, inform and provide hope. Thanks! This is an encore episode released previously in February of last year. Due to its popularity and the incredible journey of my guest, Kelly Portillo, not to mention the value of faith in many of the conversations had with patients, it seemed appropriate to post again. Certainty removes any semblance of doubt and without doubt, there is no reason for faith. Our condition is anything but certain, we and everyone supporting us are filled with doubt and fear and that means there's a great big opening for faith. Discover how Kelly Portillo practiced her faith successfully. Discover the power of perseverance and the importance of advocating for your own health as we share Kelly's captivating story, an individual who transformed her struggle with undiagnosed heart issues into a journey of self-discovery and medical triumph. At the young age of 13, Kelly's life took a dramatic turn in a karate class when she first experienced symptoms that would lead her on a path filled with challenges, misdiagnoses, and a relentless pursuit for answers. Her experiences shed light on the complexities of navigating the healthcare system and the courage it takes to stand up for oneself when faced with skepticism from professionals who should be allies. Feel the frustration and eventual elation as Kelly, undeterred by failed multiple ablasions, discovers and then connects with the expertise at Stanford to tackle her condition head-on. Her story is not just about the physical ailment of supraventricular tachycardia and a myocardial bridge but also about the emotional battle with it all, including the insurance companies, the exhausting appeals, and the sweet success of validation. Kelly's journey highlights the critical role of patient advocacy and the difference it can make in receiving proper care, offering hope and guidance for those who may find themselves in similar, overwhelming situations. Her constant and consistent belief in her faith and her fortitude, would yield incredible transformation from living with decades of pain to now embracing an active lifestyle post-unroofing surgery. Her narrative not only provides solace but also inspires; there is hope if you're suffering from a myocardial bridge and with the right support and determination, a quality life after years of furstration, is more than just possible—it's within reach. Please give us a positive review, leave a comment and subscribe. For more information, visit www.myimperfectheart.com. If you would like to participate and share your story on the program, you can email me at jeff@hearmenowstudio.com. If you would like to ask a question and have it played or answered on the program, you can leave me an audio message via DM on the facebook group page. Thank you.
Enduring the tumultuous journey of heart condition diagnosis and treatment led me, Jeff Holden, to realize the profound need for a supportive community and reliable information. Reflecting on my own experiences, from the initial confusion and misdiagnosis to the breakthrough testing and subsequent surgery at Stanford, I've been driven to share insights that can empower others in similar situations. This episode marks a significant milestone with the release of my new book, Imperfect Heart: Stories of Myocardial Bridges, a tangible resource aimed at providing solace and understanding to those who prefer something beyond digital content. Through patient stories and expert interviews, I've assembled a wealth of knowledge that addresses the myriad challenges faced by patients, families, and healthcare professionals alike. Together with the relentless dedication of our Facebook group participants, the administrators, Rob and Stephanie, and the rest of the team, our community has flourished, expanding from 1,200 to over 2,600 members in just two years. This growth underscores our collective mission to raise awareness and foster understanding of heart conditions. It also emphasizes the need for a book as well. My hope is that this book will serve as an invaluable tool not only for individuals grappling with their diagnosis but also for medical professionals who need a deeper grasp of patient experiences. By sharing these narratives and insights, I aim to reach those who aren't digitally inclined and provide a cornerstone of support that bridges gaps in communication and knowledge across all fronts. Now we finally have... a book, the book, my book. Get your copy of Imperfect Heart:Stories of Myocardial Bridges HERE.
Jennifer Shetler never imagined that a routine run would lead her from the role of a healthcare professional to that of a heart patient. Yet, an unexpected bout of chest pain during her daily jog turned her world upside down, prompting her to reassess her perceptions of health. Join us as Jennifer shares her deeply personal journey through the complexities of cardiac care, from initial missteps in diagnosis to the eventual discovery of a myocardial bridge. Her story emphasizes the unpredictable nature of heart conditions, particularly for athletes, and sheds light on the unique ways these issues present in women. As we navigate Jen's experiences, we highlight the critical steps in diagnosing and managing cardiac conditions, emphasizing the importance of comprehensive testing. Her narrative underscores the challenges faced when outward appearances of health mask underlying problems, and how persistence in seeking advanced imaging can be life-saving. She candidly shares her decision-making process surrounding surgical options, the role of community support, and her reliance on a network of friends and run club members in overcoming her health crisis. The episode also explores the emotional and physical journey of recovery following cardiac surgery. Jennifer offers insights into building a strong support system and the power of patient advocacy in securing necessary care. Through her story, listeners are reminded of the importance of listening to their bodies and advocating for themselves within the healthcare system. Jennifer's transformation from heart nurse to heart patient serves as a poignant reminder of the value of resilience, knowledge, and community in navigating life's unexpected trials. Her trust in care is clearly demonstrated knowing the track record of a cardio thoracic surgeon known for his skill in bypasses, not unroofing procedures. This should be a valuable understanding as it opens the door for so many more opportunities to be "unroofed" knowing the necessary content is available to teach and support a qualified surgeon to perform the sugery he or she has likely already experienced.
Embarking on a quest for answers, Steve Millington faced a world of mystery when his heart first sent distress signals at just 22. Misdiagnosed and misunderstood, Steve's journey through unrelenting chest pain took him from Australia to Sweden, and eventually across Europe, in search of clarity and care. With the steadfast support of his partner Kim, Steve's path was fraught with skepticism from the medical community and financial burdens that threatened to overshadow his fight for health. This episode chronicles not just a physical journey, but a testament to resilience and the power of unyielding self-advocacy. Across continents and healthcare systems, Steve's search for a solution to his symptomatic heart bridge was anything but conventional. Failing to find resolution within European borders, Steve's story led him to Pakistan, where Dr. Takir Akbar recognized the urgency of his condition. This wasn't just a leap of faith but a critical pivot in a long-fought battle against medical uncertainty. Discover how Steve navigated the complexities of international healthcare and challenged preconceived notions about medical treatment abroad, ultimately finding hope and healing in unexpected places. The cost of pursuing heart health extended beyond financial struggles to emotional and mental challenges, as Steve navigated a landscape that often felt isolating. With courage, he faced the obstacles of delayed diagnoses and skeptical professionals, advocating for himself in a world that didn't always provide clear answers. Through his experiences, we are reminded of the crucial role of perseverance and the pursuit of all possible options, regardless of geographic or financial boundaries. Join us as we unravel Steve's inspiring tale of navigating the intricacies of global healthcare and the undying spirit of someone who refuses to give up. Chapter Summaries (00:00) Steve Millington's Heart Journey Steve's journey with persistent health symptoms, misdiagnosis, and support from his partner, leading to seeking medical attention. (11:46) Desperate Search for Heart Surgery Desperate search for treatment of rare heart condition spans multiple countries, facing skepticism and insurance complications. (21:20) Heart Surgery Journey in Pakistan Transformative journey to Pakistan for medical procedure, highlighting excellent care and cost-effectiveness, with unexpected post-surgery complications. (31:16) Financial Challenges in Seeking Medical Care Becoming a health advocate, researching reliable information, and seeking affordable treatment for COVID vaccine-related conditions. (36:22) Navigating Heart Health Treatment Options Proactive health management, securing loans for surgeries, self-advocacy, and risks of untreated cardiac issues. (49:16) Journey to Affordable Heart Surgery Steve's journey of undergoing open heart surgery in Pakistan due to cost constraints and lack of proper diagnosis, highlighting the importance of perseverance and exploring all possible avenues for better health outcomes.
Facing unexpected health challenges can be a monumental experience, as lifelong athlete John Chan discovered when he encountered severe chest pains during an ultra marathon. Join us as he recounts his compelling journey from initial denial to acceptance of his heart condition, navigating a complex medical landscape as the youngest patient in his cardiologist's office. John's story is one of resilience, determination, and the profound realization that health challenges can change one's perspective on life. The recognition his gift of recovery, created a reflective and appreciative mindset at first, only to fall back into his lifestyle prior to the presentation of symptoms and subsequent surgery. John takes us through the emotional and mental preparation for his heart surgery, painting a vivid picture of the virtual orientation with Dr. Balkhy that eased his fears and brought clarity. This pivotal moment highlights the importance of trusting medical expertise while balancing it with personal goals and emotional wellbeing. Discover how John's journey underscores the necessity of a comprehensive approach to major health decisions, where spiritual and gratitude aspects coexist with medical concerns. As John celebrates his remarkable recovery journey, he emphasizes the power of openness and shared experiences in fostering hope. Whether it's the poignant moment of enjoying a Chicago deep-dish pizza before surgery or advocating for regular health check-ups, John's narrative encourages proactive health management. His heartfelt gratitude for the support from his medical team and the community underlines the impact of sharing personal health stories and building a network of hope for those facing similar challenges. It's the realization of the need to return the favor of support and gratitude for the gift of recovery that makes this story so unique, and John the man of character he is, in his return to appreciation for all that has happened for him. Chapter Summaries: (00:00) Journey to Heart Health John Chan's journey from athlete to confronting heart issues, including disbelief, medical tests, and navigating the healthcare system as a young patient. (14:45) Surgical Decision Making Process Dr. Balkhy's virtual orientation session for a medical procedure focused on understanding the patient's journey, goals, and trust in the medical team's expertise. (18:58) Life-Changing Heart Surgery Recovery Preparing for surgery, meeting Dr. Balkhy, and reflecting on life's legacy and gratitude during recovery. (32:59) Sharing Hope and Gratitude Sharing personal health experiences to inspire and provide hope, emphasizing proactive management and advocating for men's health. (41:46) Gratitude and Shared Hope Gratitude and hope in recovery journeys, support from medical professionals, and sharing personal experiences to inspire others.
I was doing some work with AI for a project and I wondered what I would find if I began a conversation about myocardial bridges. To my amazement, the responses to my questions were quite contemporary, on point for the most part and very much aware of the condition without doubt. I found the answers to be as technical as I wanted to get or as general given what I asked. The overall takeaway for me, was that there was little downside or disinformation. The entire conversation was pro myocardial bridges as we know them. If we could only get the majority of our medical community to be as receptive to the condition as our AI is, there would be far fewer people suffering from the condition and, in my opinion, far fewer deaths from cardiac arrest. We're making progress and the more our digital/virtual resources endorse the corrective procedures for a condition that is more common than other diseases like cancer and stroke, the better off we're going to be. There's a lot in the episode as we cover a lot of ground. It's one worth taking notes on if you find areas of interest. I hope the episode gives you some additional support to share with whomever you're trying to convince that what you're experiencing is real. It should also enlighten you to the capability of what AI can provide us with regard to information about myocardial bridges. It gives me tremendous encouragement to see that AI is initially very receptive to the techniques for correction of a bridge. Here's to a future of acute awareness of MB's and to procedures and techniques to remedy them. I know one place we can go to get comfort in knowledge! Enjoy the episode.
In this episode I take a moment to reflect and celebrate a year of content novelty and camaraderie in our Imperfect Heart community. From hosting 11 awesome patients who shared their personal journeys to featuring insights from 10 esteemed doctors, this episode is a testament to the strength and resilience of our community. We explored the world of unroofing surgery with top robotic surgeons and experience the detailed moments from inside the OR through exclusive videos on our YouTube channel. Each story and professional insight is a stepping stone toward understanding and advocacy for myocardial bridges and for that, I'm grateful. Our first-ever Myocardial Bridge meetup united patients from across the nation, sparking a network of support and hope. We even broke new ground with a three-part series chronicling a patient's journey from diagnosis to surgery, offering a rare, in-depth look at the procedure. An interventional cardiologist joined us to clarify the provocative test, an essential but often misunderstood evaluation for our condition. What a wonderful year it's been. I invite anyone with their own story or a recommendation for a medical professional to join our mission of raising awareness and support. Together, let's continue to shine a light on myocardial bridges and inspire each other. Have a wonderful Christmas holiday and here's to a happy and healthy new year in 2025. If you would like to connect with me directly, my email is: jeff@hearmenowstudio.com. I hope to hear from you.
This episode includes graphic video and a detailed explanation of the "unroofing procedure" from the operating room and is best when viewed on the "Imperfect Heart" YouTube Channel. In this, the third in a series on the "Vollmer Journey", we uncover the transformative potential of robotic myocardial bridge unroofing surgery as we bring you an insightful conversation with Dr. Johannes Bonatti, a pioneer in the field now practicing at University of Pittsburgh Medical Center, and David Vollmer, the patient who experienced its benefits firsthand. Hear how robotic techniques are redefining unroofing surgery, offering significant advantages over traditional methods, including quicker recovery times. David shares his remarkable journey back to full physical activity in just three months, shedding light on the decision-making process and the crucial role of provocative testing in determining the necessity of surgery. Step into the state-of-the-art hybrid operating room where technology meets surgical expertise. Dr. Bonatti reveals how the DaVinci robot enhances the precision of procedures like robotic unroofing of myocardial bridges. Gain an understanding of the importance of work on a resting heart and the process to make that happen. Additionally, explore the vital function, in detail, of the heart-lung machine in maintaining circulation during surgery, providing insights into the meticulous care involved in these advanced procedures. We'll discuss the complexities and risks of robotic heart surgery, with Dr. Bonatti as he details the nuance and novelty when compared to thorocotomy or sternotomy. We discuss the subject of myocardial bridges and their potential links to sudden cardiac events, highlighting the growing recognition of these conditions in the medical community. As we close this third episode of the series, it truly is a celebration of patient recovery and the dedication of Dr. Bonatti and his team, inspiring confidence in the future of myocardial bridge repair both robotically and traditionally. We continue to provide evidence of successful outcomes of this somewhat controversial procedure to provide hope for those with the condition and looking for solutions. To learn more about UPMC and their innovative robotic cardiac care, you can find more by cliking on this LINK You can also call the department at 412-648-6200, option 7 when prompted. CHAPTER SUMMARIES (00:00) Robotic Heart Surgery Dr. Bonatti and David Vollmer discuss the decision-making process and benefits of robotic cardiac surgery, including quicker recovery times. (15:37) Robotic Heart Surgery Robotic totally endoscopic unroofing of LAD myocardial bridge using DaVinci robot in hybrid OR with CO2 insufflation and heart-lung machine support. (35:20) Managing Risks in Robotic Heart Surgery Cardioplegia and hemostatic agents are used in robotic heart surgery, with a focus on patient safety and positive experiences at UPMC. (40:28) Myocardial Bridges and Robotic Surgery Nature's risks in cardiac surgeries, including pericarditis and atrial fibrillation, and the role of myocardial bridges and advancements in robotic technology. (52:04) Robotic Heart Surgery Success Story Successful recovery from surgery, addressing mineral deficiency and absence of AFib, with innovative approach by Dr. Bonatti at UPMC.
Unlock the secrets of properly understanding and diagnosing myocardial bridges with insight from Dr. Jeffrey Fowler, a leading interventional cardiologist at University of Pittsburgh Medical Center. Our conversation promises to illuminate the often perplexing process of diagnosing these cardiac anomalies and their impact on heart function. Through the lens of minimally invasive procedures and advanced imaging techniques like coronary CT angiograms, Dr. Fowler demystifies why myocardial bridges are not always the main culprits behind chest pain and the definitive testing now being done to ascertain the significance of the myocardial bridge. We're going to explore the intricate world of invasive testing, as we detail the provocative testing process used to evaluate myocardial bridges, their severity and their contribution to angina, or chest pain. Dr. Fowler explains how starting with an empiric trial of medications can lead to more invasive procedures like heart catheterization if necessary. Learn about the steps of the provocative test and the role of acetylcholine in testing for endothelial dysfunction and vasospasm, with reassurances about the safety and reversibility of these tests. This episode is our first on the detail and best practice for diagnosis of the bridge through the provocative test we've heard so much about. It's meant for the education and knowledge for both patients and professionals, enhancing understanding of the nuanced approaches in relatively rare process of diagnosis. Celebrate the spirit of collaboration among cardiology experts as Dr. Fowler shares the necessity of communication and advice. He's consulted with many others along the way including Dr. Shaw at Yale and Dr. Tremmell at Stanford, highlighting real-world case studies like that of patient David Vollmer. Join me in this compelling narrative of breakthroughs and dedication in the realm of cardiac care, and discover how ongoing advancements promise a brighter future for patients everywhere. This episode also has a video component that can be found on the Imperfect Heart YouTube channel or by clicking on the link HERE. To reach Dr. Fowler call 412-647-6000 and ask for him specifically. Or you can visit the hospital website HERE . Dr. Fowler's email is: fowlerja@upmc.edu You can learn more about the Microvascular Network in the link HERE.
When David Vollmer first felt his heart race unpredictably during a workout, little did he know it would kickstart a journey that would redefine his understanding of health. From grappling with atrial fibrillation (AFIB) and a surprising diagnosis of myocardial bridging, David's unwavering pursuit for answers led him to challenge traditional medical advice and seek holistic paths to wellness. Tune in to explore how David's story highlights the power of self-advocacy and the importance of asking the right questions when navigating complex heart issues. Join us as David recounts his relentless search for an accurate diagnosis and effective treatment options, shedding light on the emotional and physical challenges faced along the way. His experience underscores the necessity of investigating underlying causes, like mineral deficiencies, and considering alternative therapies, including hyperbaric chambers and red light therapy. Through his candid reflections, we learn about the critical balance between conventional treatments and innovative health technologies that supported his recovery and empowered his personal health journey. David's story is a powerful reminder of the importance of being an informed and proactive participant in one's health decisions. As he shares his experiences, from consulting multiple doctors to understanding medical jargon, listeners are encouraged to consider diverse treatment approaches and advocate for personalized healthcare solutions. Whether tackling heart surgery decisions or managing post-operative recovery, David's insights offer invaluable guidance for anyone navigating similar health challenges. You can reach out to David using the links below: o Https://thevollmerjourney.com o David@thevollmerjourney.com You can follow David on social media at one of his many handles for your preference of outlets below: o Instagram: https://www.instagram.com/thevollmerjourney o Twitter: https://x.com/vollmerjourney o Facebook: https://www.facebook.com/TheVollmerJourney o LinkedIN: https://www.linkedin.com/in/david-vollmer-jr-aa33aaaa/ o Youtube: https://www.youtube.com/@TheVollmerJourney o Rumble: https://rumble.com/user/TheVollmerJourney o Truth Social: https://truthsocial.com/@thevollmerjourney CHAPTER SUMMARIES (00:00) Health Journey David's journey with AFib, his preference for holistic solutions, and his advocacy for investigating deficiencies in his health. (11:38) Health Discovery and Treatment Journey Discovering and addressing myocardial bridging, proactive health management, and integrating alternative health technologies. (16:23) Medical Decision Making Process Choosing a medical path, consulting with doctors, and importance of Stanford protocol in addressing mechanical issues. (28:17) Post-Robotic Surgery Recovery and Herbal Remedies Patient's journey at UPMC highlights importance of convenience, challenges in recovery, and use of herbal remedy. (33:23) Advocating for Personal Health Education David's holistic approach to managing AFib includes medical treatments, alternative remedies, self-advocacy, and lifestyle changes. (42:26) Advocating for Personalized Healthcare Options Navigating medical journey after diagnosis, advocating for oneself, understanding surgical options, and taking control of health journey. (46:45) Navigating Heart Surgery and Recovery Emotional and physical journey of minimally invasive heart surgery, including provocative testing, support systems, and post-operative experiences. (54:41) Alternative Health Approaches and Surgery Recovery Nature's unconventional, scientifically backed approaches to cancer and AFib, personal journey, upcoming episodes with Dr. Fowler and Dr. Benati, and the importance of community support.
For many of us afflicted with this condition, it's easy to get lost in the challenges of living with a myocardial bridge. Whether you've been unroofed or not, there are still a myriad of things to be thankful for and Dr. Peggy DeLong helps us get to understanding the point of gratitude. If you've already heard the episode, it won't hurt to refresh your memory on the value of being grateful and making a kind gesture to someone to show your appreciation for them. There's a visceral effect to giving that makes you feel good. Tis the season... May you have a wonderful Thanksgiving holiday from your team at Imperfect Heart.
Imagine growing up on a rural desert farm, surrounded by sports and discovering pickleball before it became a sensation. That was Benjamin Hunt's life until an unexpected health crisis turned his world upside down. Ben shares his journey from an active lifestyle to facing alarming symptoms like exercise intolerance and chest pain, experiences initially dismissed by doctors. Despite leading a busy life as a teacher and coach, he found himself in a frustrating odyssey for answers, battling severe exhaustion and undiagnosed symptoms for years. Ben's relentless quest for a diagnosis unfolds as he talks about the cognitive challenges that demanded self-education and advocacy. Through sheer determination, he identified a constriction in his artery, a crucial finding overlooked by several cardiologists. His perseverance eventually led him to Professor Kofidis, whose confirmation of the need for heart surgery marked a significant turning point. This episode also highlights Ben's belief in divine inspiration, emphasizing the power of persistence, even when traditional medical avenues appear exhausted. Travel with Ben to Greece as he recounts his solo journey to recovery, filled with anxiety and hope. Alone in a foreign land for heart surgery, he found support in a local named Gregory, and technology kept him connected to loved ones back home. The "unroofing" procedure performed by Dr. Kofidis brought a renewed sense of life and joy upon reuniting with his family. Ben's story is a testament to the importance of community, faith, and prayer, encouraging us to share our unique experiences to inspire and support one another through life's unpredictable challenges. To get the documents we discuss in this episode, email me at Jeff@hearmenowstudio.com and in the subject line put "Ben's Homework". I'll get them out to you immediately. CHAPTER SUMMARIES: (00:00) Heart Health Journey Through DenialBenjamin's journey from an active lifestyle to dealing with an undiagnosed health crisis, despite multiple medical evaluations. (14:36) Personal Journey to Heart SurgeryOvercoming challenges in understanding a complex medical condition through self-education and self-advocacy, leading to successful surgery. (25:18) Recovery and Relationship RenewalA solo traveler's transformative trip for heart surgery in Greece, overcoming challenges and finding support, and returning home with gratitude and renewed appreciation for life. (37:18) Personal Journey of Faith and HealingSharing personal medical journeys highlights the uniqueness of experiences and the power of community support, faith, and gratitude.
Knowing I needed to find a cardiologist in my home community post surgery, left me a little disappointed to leave the confines of Stanford's outstanding care. After two years it seemed a good idea to reach out to see who might be the "lucky" doctor to get a patient like me. I'm pleased to say that the gentleman I was fortunate to be introduced to turned out to be very knowledgable about our condition and we had a very nice first consultation. Meeting Dr. Diwakar Lingam was a breath of fresh air as you're going to hear in this episode. His expertise offered reassurance, reminding me what a crucial role a well-informed cardiologist plays. This episode unfolds my first encounter with Dr. Lingam, a cardiologist who not only understood the complexities of our condition but also embraced the opportunity to share insights with our listeners. With his guidance, we explore what patients should seek in their healthcare providers, especially when navigating the oft-overlooked terrain of myocardial bridges. You'll hear me explain my personal medical narrative, from the initial bewildering diagnosis to the life-changing care I received at Stanford. Myocardial bridges are not just a medical anomaly but involve genetic factors and precise surgical interventions like unroofing surgery, which we dissect in our first discussion. Dr. Lingam understood the value of proper diagnosis, the role of advanced imaging techniques, and the often-missed symptoms that can complicate the path to treatment. This is a call to action for the cardiology community to bolster awareness and refine diagnostic approaches. Not many doctors would feel comfortable with a new patient, walking in with a recording device and asking to record the conversation in that very first meeting. Dr. Lingam was and I applaud him for his acceptance as this very simple gesture alone may allow this episode to be shared with other cardiologists who may not be as astute and aware of the need to treat a diagnosed MB patient differently. You can reach out to Dr. Lingam or share his contact information with a cardiologist you may want to connect with him at Roseville Cardiology Group. BIO Diwakar Lingam, M. D. graduated from Siddhartha Medical College, NTR University of Health Sciences, Vijayawada, India in 1994. He completed his residency at State University of New York (SUNY) Downstate Medical Center in Brooklyn, NY where he served as a Chief Resident of Internal Medicine. He completed his fellowship in Cardiovascular Disease from Dartmouth Hitchcock Medical Center in Lebanon, New Hampshire. Dr. Lingam strongly believes in solid patient education to improve patient compliance with treatment and better health outcomes. He strives hard to help patients understand clearly the rationale behind all the tests, treatment choices and medications prescribed. He focuses his patient education on lifestyle changes and the value of diet and exercise in the management of many cardiac and medical issues of the patient. Dr. Lingam's clinical interests are preventive cardiology, cardiac imaging, and cardio-oncology. He loves to help patients with cancer treatment-related cardiac issues and patients interested in preventing cardiac and vascular problems. He lives in Folsom with his wife and two children. During his free time, he enjoys biking, playing chess, and spending time with family. (00:11) New Cardiologist Discusses Myocardial Bridges Meeting a new cardiologist after myocardial bridge surgery, discussing the importance of informed and empathetic care in cardiology. (04:51) Myocardial Bridges Myocardial bridges, unroofing surgery, genetic nature, accurate diagnosis, specialized care, radiation exposure, contrast use, diabetic patients, continued research. (17:30) Follow-Up Consultation on Treatment Plan Specialized centers, robotic surgery, statins, and follow-up care are important in treating cardiac conditions.
What if the very medication meant to ease your post-surgery pain ends up causing a whole new set of problems? This episode pulls back the curtain on the real-life challenges of post-surgery recovery, starting with the digestive issues caused by pain medications like oxycodone. You'll hear firsthand accounts of the shift from relying on narcotics to managing pain with ibuprofen & Tylenol to minimize constipation, including the embarrassing and frustrating moments that come with it. We explore not just the physical ramifications but the emotional toll of trying to balance effective pain relief with uncomfortable side effects. Celebrate the small yet significant victories of recovery with us, from walking around the block to taking a shower independently, or just getting a shirt on or off! We dive into the emotional rollercoaster that accompanies healing, marked by fluctuating health, unexpected setbacks, and the importance of mental health support. Sharing practical tips for managing back pain and finding comfortable sleep arrangements, this episode underscores the need for patience and resilience. Each personal story highlights the non-linear nature of recovery, reminding listeners that healing is a process with both triumphs and setbacks. The trendline is not linear but as long as it continues upward, that's a good thing. Finally, join us as we explore the path to reclaiming normalcy during cardiac rehabilitation and the quest for post-hospital independence. Hear about the emotional and physical struggles faced in rehab, the anxious moments of driving again, and the cautious steps taken to regain independence. Personal stories bring to life the feelings of vulnerability and reliance on others, providing reassurance and support to anyone on this challenging journey. Listen in for a candid, heartfelt discussion that aims to provide hope and encouragement to those navigating the difficult path of recovery. As the host, I have to admit reliving this experience had it's highs and lows but having the discussion amongst friends who have been through the same things, was not only comforting, but sad to see it end. This was the last session of the day before everyone left to return home to wherever that was. Putting the episode together reminded me again that we need others to support us, we need to share our stories and there is nothing like being together in-person to discuss our situations. Thank you all again for your participation and I sincerely hope that as you listen, you get some comfort, hope and awareness that we are all unique individuals and that everyone who has the surgery is going to have a different outcome than the person before or after them. Continued success on your journeys and welcome each day with positivity and gratitude. (00:00) Post-Surgery Recovery and Pain Management Post-surgery experiences with pain management, digestive challenges, and balancing medication side effects while recovering. (11:23) Challenges and Triumphs in Recovery Recovery after a medical procedure involves celebrating small victories, dealing with setbacks, and seeking mental health support. (21:34) Challenges of Cardiac Rehab Challenges and experiences in cardiac rehab and recovery, including delayed start, physical struggles, and milestones achieved. (27:02) Adjusting to Post-Hospital Independence Recovery after a medical event involves regaining independence, facing fears, and taking cautious steps towards normalcy.
Live from the Imperfect Heart meetup, this episode features an intimate and heartfelt roundtable discussion among the patients and their caregivers who have all experienced the effects of a myocardial bridge on their loved one. Participants share their personal stories, their reactions to the diagnoses, treatments, and ongoing struggles post surgery. They discuss the emotional and physical impacts of their journeys side-by-side with their loved one, the importance of a being supportive partner, and the value a caregiver provides in simply getting comfortable with a new life. Special attention is given to the dynamics of relationships under stress, the role of caregivers, and the significance of faith and perseverance. Some participants also share the specifics of various medical procedures they have undergone, including traditional and robotic heart surgeries, and the impact on their lives post-surgery as well as the changes in relationships once the procedure is complete. These candid conversations should provide a backdrop for others to see what success looks like in both the journey up to and post surgery. What an incredible group of partners everyone of the patients were so blessed to have. Episode Chapters 00:00 Introductions and Initial Thoughts 00:48 Jeff's Health Journey 02:50 Caregiver Experiences and Challenges 06:05 Decisions and Reflections on Surgery 09:13 Post-Surgery Realities and Adjustments 12:30 Unique Experiences and Perspectives 24:32 A Heart Attack Experience 24:48 Medical Journey and Challenges 27:25 Exploring Treatment Options 32:39 Family Impact and Discussions 39:41 Reflections and Realizations
These things don't happen in a vacuum so I just wanted to express my appreciation for everyone that took the time out of their weekend to show up, contribute and use their stories to the benefit of others. I also know every one of those in attendance are going to push out to their sphere of medical professionals to continue to keep the pressure up until we get complete acceptance that myocardial bridges are symptomatic. For that, I'm grateful from the bottom of my imperfect heart. We'll be posting recordings of additional sessions during the event over the course of the next few weeks. I hope you enjoy them all and find them both useful and helpful. If you find these were helpful, share it in a comment or send me an email. We want to do as much as possible to support those of you in need. Stay positive, in rhythm and let the beats go on!
Is there a right surgical approach that completely transforms the lives of patients with myocardial bridges? This episode is a live recording of the first ever myocardial bridge meetup where Dr. Theo Kofidis, took the time to virtually join us from Greece for the first session of the day. We learned of his ambitious project of revamping a JCI accredited hospital into a cutting-edge medical facility. He takes questions from the group including attendee Jane's prolonged struggle with myocardial bridge symptoms and provides suggestions and support from his perspective. He shares insights into the significance of timely intervention and the crucial consideration of surgical options when medication fails. Questions from the group included best practices for unroofing a myocardial bridge. Dr. Kofidis outlines the meticulous surgical techniques that ensure optimal outcomes in his opinion. We dig deeper into the importance of global collaboration among healthcare professionals to enhance treatment efficacy and work toward identifying long term, symptom free patients to better support proper procedures for "unroofing". We spoke of advanced diagnostic tools like 3D reconstruction and high-frequency ultrasound that aid in post-operative evaluation, and heard why minimally invasive endoscopic approaches, complemented by tactile feedback, offer significant benefits. The group got expert advice on achieving comprehensive and precise surgical results for myocardial bridges that we're now sharing with anyone interested. Finally, we ventured into the realm of advanced diagnostics and the role of AI in cardiology. Dr. Kofidis discussed the underdiagnosed prevalence of myocardial bridges and their connection to coronary artery disease and coronary artery spasms. We conclude with an engaging discussion on medical tourism in Greece, highlighting its potential advantages and the robust support system within the medical community. Dr. Kofidis, as always, offers his expert advice and invites any concerned or interested party to reach out for a discovery call to see if Greece might be an option for you. What a special treat it was indeed. You cab reach Dr. Kofidis by email: tkofidis@hotmail.de Episode Chapter Summaries (00:00) Myocardial Bridge Treatment and ComplicationsDr. Kofidis discusses his transition to a new hospital, upcoming operations on myocardial bridge patients, and the importance of prompt treatment and medical options. (14:59) Optimal Methods for Myocardial Bridge UnroofingNature's intricacies of unroofing a myocardial bridge, collaboration between surgeons and cardiologists, and use of advanced diagnostic tools. (22:49) International Heart Surgery Center in AthensCT scanning technology and AI in cardiology improve accurate diagnosis of myocardial bridges and their relationship with coronary artery disease. (35:43) Heart Surgery Tourism ConversationDr. Kofidis and I discuss the pleasure of visiting Greece, medical tourism, and the supportive network within the medical community.
What if the future of heart surgery didn't involve massive scars and long recovery times? On this episode we'll visit the pioneering world of minimally invasive cardiac procedures through the eyes of Dr. Allan Stewart, Medical Director and Chief of Cardiovascular Surgery at HCA Florida Mercy Hospital. A leading cardiac surgeon, his journey from childhood started with an understanding of mechanics that led to groundbreaking medical innovations. His path is nothing short of inspiring. Dr. Stewart shares the pivotal moments that led him to transform the field, including a captivating Nova episode on pediatric heart transplants, and his many years of practice using minimally invasive techniques. Ever wondered how surgeons tackle the complexities of myocardial bridges? Dr. Stewart takes us on a compelling journey through his unexpected dive into this challenging area while at Columbia University. He explains the intricacies of diagnosing and treating these conditions, and the critical decision-making involved in whether to perform surgeries on a beating heart or with a pump. From ensuring precision to avoid catastrophic complications like cutting the artery, to the difficulty of accurate diagnosis, this segment shines a light on both the art and science of cardiac surgery. Finally, we'll delve into the crucial importance of thorough and precise surgical intervention. Incomplete arterial surgeries can lead to devastating consequences, including the need for complex redo surgeries. Dr. Stewart emphasizes the necessity of proper techniques to prevent complications and stresses the importance of educating both patients and cardiologists about the risks associated with myocardial bridges and inappropriate stent use. Join us for this enlightening conversation, and on a lighter note, I look forward to a future bike ride together in South Florida. Don't miss this episode with one of the field's most innovative minds. To reach Dr. Stewart a voice mail or text message was suggested as best. 917-748-7836 To learn more about Dr. Stewart click on the link: Dr. Allan Stewart Episode Highlights (00:17 - 00:40) Becoming a Leading Cardiac Surgeon (03:55 - 05:37) Assessing Candidates for Thoracotomy (09:50 - 11:27) Minimally Invasive Approach in Surgery (14:20 - 15:46) Advanced Imaging Technology in Cardiology (18:58 - 19:57) Robotic vs Full Heart Surgery (23:01 - 23:52) Successful Artery Surgery Examination (31:15 - 33:04) Traveling for Specialized Medical Procedures Chapter Summaries (00:00) Cardiac Surgeon Discusses Minimally Invasive Procedures Dr. Stewart shares his journey to becoming a pioneer in less invasive cardiac surgeries, emphasizing the importance of minimizing trauma and improving cosmetic outcomes. (05:39) Advances in Myocardial Bridge Diagnosis My journey into addressing myocardial bridges began serendipitously and involves challenges such as diagnosis and surgical techniques. (19:59) Cardiac Surgery Complications and Stress Relief Proper surgical techniques and education are crucial in preventing complications and misdiagnosis of arterial bridges in heart surgery. (33:43) Importance of Complete Artery Surgery Nature's arterial bypass and stent surgeries, complications from incomplete procedures, and importance of thorough intervention.
Join me for an enlightening episode of the Imperfect Heart Program, where I sit down with Pete Furman, a competitive cyclist who shares his unexpected heart health journey. Despite his excellent physical condition, Pete experienced mysterious symptoms like hand tingling, jaw pain, and a decline in athletic performance. Initially misdiagnosed with conditions such as idiopathic peripheral neuropathy and exercise-induced asthma, Pete's story underscores the importance of not dismissing unusual sensations or discomforts, even if you're physically fit. Listen in as Pete emphasizes the critical need for proper medical evaluation and awareness of heart health. In this episode, we also tackle the intricate world of health insurance, particularly when it comes to managing complex medical conditions and surgical approvals. Navigating the maze of insurance plans like HMOs and understanding the fine print can be daunting, as highlighted by our discussion on unroofing surgery and the challenges of getting necessary treatments approved. We offer valuable insights and practical advice on dealing with insurance companies, filing appeals, and the importance of being detail-oriented and persistent in finding solutions. Pete's journey continues as he prepares for heart surgery, sharing his emotional roller coaster from initial diagnosis to the anticipation and anxiety surrounding his unroofing surgery. The support from his wife Lisa and friends in Sedona plays a crucial role in keeping his spirits high. We also explore the importance of a determined mindset and connecting with others who have undergone similar experiences. This episode is packed with heartfelt discussions, practical advice, and inspiring stories that offer hope and guidance to anyone navigating heart health issues and the complexities of the healthcare system. Episode Highlights (01:15 - 02:55) Imperfect Heart Program With Pete Furman (10:57 - 12:12) Challenges in Medical Treatment Journey (18:47 - 20:56) Navigating Health Insurance Challenges (24:20 - 25:47) Health Plan Denials and Appeals (29:09 - 31:11) Effects of Pericarditis and Scar Tissue (41:27 - 42:05) Health Insurance Coverage Denial Appeal Chapter Summaries (00:06) Heart Health Journey and Awareness Competitive cyclist Pete Furman shares his journey with heart health issues, emphasizing the importance of not dismissing symptoms. (15:09) Navigating Health Insurance for Surgery Managing a complex medical condition with medication and lifestyle changes, navigating insurance approvals, and advocating for necessary treatments. (22:13) Health Insurance Challenges and Surgical Considerations Navigating healthcare systems, insurance approvals and appeals, and the importance of post-surgery outcomes for informed decision-making. (31:13) Navigating Heart Surgery and Recovery Pete's emotional and physical journey preparing for heart surgery, including drug therapy, support network, determined mindset, and future plans for post-surgery discussions. (39:14) Navigating Insurance Appeals and Alternatives Navigating insurance issues requires proactive research and persistence, with potential benefits for the wider community.
Imagine waking up each day with a renewed sense of hope and determination, knowing you're part of a community that truly understands your journey. In this special update episode of Imperfect Heart, I, Jeff Holden, am thrilled to share our exciting plans and new features for the podcast through the end of the year. We're sticking to our consistent publishing schedule—episodes drop on the second and last Wednesday of each month—and gearing up for an engaging meetup on September 14th in Sacramento. Join us! (The invite is in the show notes.) This gathering will be a fantastic opportunity for rich interactions and shared stories, making it a can't-miss event. Reflecting on our progress, we've expanded our release cadence and featured a wide range of healthcare professionals and patient stories, and we're looking forward to bringing you even more thought-provoking discussions with renowned doctors and the latest research updates. Plus, don't forget about our new short-form news pods designed to keep you informed with timely information. A heartfelt thank you to all our listeners for your incredible support and engagement. We need to work together to tell more stories and convert more healthcare professionals to an understanding this condition is cutting lives short and really change the way of thinking that exists in so many medical communities. We'll continue to share motivational stories that inspire hope for those dealing with heart conditions, especially myocardial bridges. The importance of understanding and improving everyone's situation is emphasized, ensuring you know you're not alone. If you have a myocardial bridge, be sure to join the private Facebook group, Myocardial Bridge Support Group. And don't forget to leave positive reviews or comments, subscribe, and share to help spread awareness. Remember, welcoming each day with gratitude and positivity can make a significant difference in your journey. To be a guest on the program, you can reach out directly to me via email: jeff@hearmenowstudio.com. I hope to hear from you. The link to RSVP for the first ever Myocardial Bridge Meetup is below. https://www.eventbrite.com/e/imperfect-heart-myocardial-bridge-meetup-tickets-934694605727?utm-campaign=social&utm-content=attendeeshare&utm-medium=discovery&utm-term=listing&utm-source=cp&aff=ebdsshcopyurl Chapter Summaries (00:16) Imperfect Heart Podcast Update Imperfect Heart's upcoming events, diverse stories, and engaging discussions with doctors and research updates on myocardial bridges. (07:07) Heartfelt Thank You to Listeners Expressing gratitude for support, sharing motivational stories, joining support group, reaching out for reviews and spreading awareness.
Ever wonder how someone can maintain a healthy lifestyle yet still face severe heart issues? Join me as I unpack Mary McDonald's gripping journey through hereditary heart disease, starting with her struggles with high blood pressure. Despite her best efforts to stay healthy, Mary's initial disregard for medical advice led to severe complications, including a wake-up call from foot surgery. This episode underscores the crucial lesson of heeding medical guidance when hereditary caardiac conditions are in play. Through a rollercoaster of diagnoses and treatments, Mary's story takes us deep into the labyrinth of heart disease diagnostics. After facing conflicting advice and even a suggestion to consult a psychiatrist, Mary's persistence led her to explore treatments at Stanford. Her tale of moderate heart valve regurgitation and a myocardial bridge reveals the challenges of being misunderstood by the medical community and the importance of self-advocacy and finding a supportive medical team. Then, travel with Mary to Greece, where she underwent "unroofing" heart surgery and received exemplary care from Dr. Kofidis and Dr. Patakos at Hygia Hospital. Her detailed account compares the medical care in Greece to that in the U.S., offering insights into her recovery journey, including overcoming severe back pain and managing osteoporosis. Ending on a high note, Mary's resilience shines through as she shares her marathon ambitions and renewed passion for flying. This episode is a testament to the power of perseverance, optimism, and self-advocacy in the face of the uncertainty of cardiac health challenges. You can find Hygia Health Care in this link: https://www.hygeia.gr/ To learn more about Myocardial Bridges, visit: https://www.myimperfectheart.com/ CHAPTER TIMESTAMPS: (00:00) Myocardial Bridge Discovery and Treatment (09:35) Diagnostic Journey of Heart Conditions (23:22) Medical Care in Greece (26:57) Post-Heart Surgery Pain Management Plan (40:09) Recovery From Heart Surgery and Flying (48:42) Overcoming Situational Depression and Heart Surgery (55:10) Recovery and Positivity in Heart Surgery CHAPTER SUMMARIES: (00:00) Myocardial Bridge Discovery and TreatmentMary McDonald's journey with hereditary heart disease highlights the importance of adhering to medical advice and challenges of managing the condition. (09:35) Diagnostic Journey of Heart ConditionsA patient shares her emotional and physical journey navigating heart disease, including conflicting diagnoses, extensive research, and seeking the right care. (23:22) Medical Care in GreecePersonal account of heart surgery in Greece, guided by international coordinator and skilled medical team, with exemplary care and facilities. (26:57) Post-Heart Surgery Pain Management PlanPersonal account of heart surgery, challenges with osteoporosis, exceptional ICU care, and pain management differences. (40:09) Recovery From Heart Surgery and FlyingResilience, determination, and a positive attitude help overcome challenges, including early discharge, jogging post-operation, and a harrowing pilot experience. (48:42) Overcoming Situational Depression and Heart SurgeryIndividual overcomes situational depression through determination, positive thinking, and support from podcasts and online communities. (55:10) Recovery and Positivity in Heart SurgeryMary's inspiring journey of recovery after wrist surgery, her passion for flying and running, and her unwavering optimism and determination.
This is pretty cool! I'm using our platform to share a bit of great info in real time as it unfolds. If you subscribe or follow the podcast, you'll get these occasional Imperfect Heart Info-pods to make announcements on things that affect us in some way or another. You'll see them as well on YouTube. Here's what this Info-pod is all about. Imagine the power of sharing your journey with someone who truly gets it. That's the magic we're bringing to life with this first ever Myocardial Bridge Meetup! Scheduled for September 14th, 2024, in downtown Sacramento, California, this event is more than just a gathering—it's a chance for our community to connect, support, and uplift one another. Whether you're navigating the complexities of your condition or celebrating post-surgery milestones, you'll find a safe space to ask candid questions, share your experiences, and forge lasting bonds. I'm also hoping for a virtual discussion with one of doctors we've previously interviewed, adding even more value to our meetup. If you're within driving distance, downtown Sacramento offers a convenient and accessible location with plenty of nearby accommodations. Remember, space is limited, so register quickly for the benefit of knowing our attendance. For any questions, head to our website (My Imperfect Heart Website) and click the contact tab. Let's make this inaugural Myocardial Bridge Meetup an unforgettable experience for our community, and continue to change the way the medical world views our condition. Cheers to our imperfect hearts! Meet others in similar situations as yourself and have candid conversations about the condition Hear stories from those who have been where you are Hear from spouses and significant others who have experienced a loved on with a bridge Meet others who are active on the Facebook page that may have become trusted sources Thanks and I'm looking forward to meeting you all! Here are all the registration details: Imperfect Heart Coronary Kingdom Meetup
Can personal experiences with heart disease shape the future of heart surgery? Join me as I sit down with Dr. Danny Ramzy, a groundbreaking minimally invasive heart surgeon, to unravel his inspiring journey in medicine. Driven by his family's history with heart disease, Dr. Ramzy transitioned from classical training to becoming a pioneer in robotic heart surgery. He recounts his first encounter with robotic techniques during his fellowship and how these innovations have revolutionized procedures like unroofing myocardial bridges, offering patients faster recoveries with minimal life disruption. What makes robotic surgery a game-changer in treating myocardial bridges? The conversation shines a spotlight on the meticulous techniques Dr. Ramsey employs to free arteries from muscle encasement and the complexities involved with smaller arteries. We delve into the choice between traditional sternotomy and robotic approaches, underscoring the pivotal role of surgical experience. Dr. Ramsey also introduces us to the latest advancements in robotic surgery, including haptic feedback, which enhances precision and safety, making these procedures more effective than ever. How do we differentiate between benign intramyocardial vessels and pathological myocardial bridges? Our discussion delves into the essential diagnostic protocols and personalized treatments necessary for optimal patient outcomes. Dr. Ramsey clarifies the significant benefits of surgical unroofing for symptomatic patients and highlights the ongoing advancements at McGovern Medical School at the University of Texas Health in Houston. We'll wrap the episode by acknowledging the vibrant myocardial bridge community and Dr. Ramsey's unwavering dedication to improving patient care and outcomes. To reach Dr. Ramzy's office you can call 713-486-6690 and schedule an appointment for a consultation. Episode Highlight Timestamps (03:21 - 05:18) Robot-Assisted Unroofing for Myocardial Bridges (13:10 - 14:06) Endovascular Unroofing of Arteries (18:11 - 21:55) Myocardial Bridge Unroofing Importance (25:44 - 26:48) Global Advancements in Robotic Surgery (28:39 - 29:53) Consultation Process for Robotic Surgery Episode Chapter Summaries (00:00) Minimally Invasive Heart Surgery Innovations. Dr. Ramzy's journey to becoming a minimally invasive heart surgeon, influenced by family experiences and technology, and his use of robotics for unroofing myocardial bridges. (12:11) Robotic vs. Minimally Invasive Surgery. Unroofing myocardial bridges in LAD artery, considering surgical approach and advancements in robotic surgery for precision and safety. (18:35) Advancements in Robotic Heart Surgery. Myocardial bridges are complex and often misunderstood, but surgical unroofing can benefit symptomatic patients. (29:49) Sharing Stories of Myocardial Bridge. Facebook group supports patients with myocardial bridge, emphasizing accurate diagnosis and ongoing efforts to understand and treat the condition.
Could your heart be sending distress signals that traditional tests can't detect? Join me, Jeff Holden, for a revealing conversation with Dr. Samit Shah from Yale School of Medicine as he shares groundbreaking insights on the Discover INOCA research program. This multicenter study is pioneering the way we understand ischemia and non-obstructive coronary arteries (INOCA), focusing on elusive conditions like coronary microvascular dysfunction, myocardial bridging, and coronary vasospasm. Collaborating with institutions such as Stanford and Columbia University, this research aims to establish standardized protocols for better patient outcomes through advanced diagnostic techniques. And meet David Tretter, a patient whose life took a dramatic turn due to severe heart arrhythmias. His journey from a terrifying heart arrhytmia that led to a game-changing diagnosis at Yale is nothing short of inspiring. Dr. Shaw and his team meticulously differentiated David's myocardial bridge from his arrhythmias, using comprehensive tests like angiograms and provocative testing. Their collaborative effort underscores the importance of precision in diagnosis, ultimately leading to effective treatment and a significant improvement in David's quality of life. The road to recovery doesn't end with diagnosis. Discover the transformative power of cardiac rehabilitation through David's experience at Lawrence Memorial. Dr. Shaw emphasizes the critical role of cardiac rehab in helping patients regain physical fitness and confidence. The episode also ventures into the broader challenges of diagnosing persistent cardiac symptoms, advocating for continued innovation and collaboration in heart health research. This episode demonstrates the importance of patient-doctor relationships and the ongoing quest for better heart health solutions from today's medical care teams. To learn more about the clinical trials of Discover INOCA visit: https://medicine.yale.edu/ycci/trial/the-discover-inoca-prospective-multi-center-registry/ Episode Highlights (00:08 - 00:48) Discover INOCA Research Program (06:26 - 07:47) Identifying Myocardial Bridge (11:10 - 12:24) Treatment Plan for Myocardial Bridge Symptoms (15:48 - 17:43) Recovery Success After Surgery (21:12 - 22:34) Advantages of CAT Scans in Diagnosis (27:59 - 29:15) The Challenge of Diagnosing Myocardial Bridges Chapter Summaries (00:00) Discover INOCA Research Program Overview Discover INOCA is a collaborative research program investigating INOCA, using advanced diagnostic techniques to improve patient outcomes. (06:31) Heart Condition Diagnosis and Treatment David's journey from severe heart arrhythmias to identifying and treating a myocardial bridge, with a focus on the diagnostic process and collaborative effort among medical professionals. (16:26) Cardiac Recovery and Rehabilitation Regaining physical fitness post-cardiac surgery through structured cardiac rehab and identifying and treating coronary bridges. (20:18) Chronic Symptoms and Diagnostic Challenges Evolving technology and comprehensive workups aid in diagnosing and treating persistent cardiac symptoms, as seen in David's case. (27:59) Patient-Doctor Relationship and Heart Research Myocardial bridges, patient frustration, advanced testing, groundbreaking research, patient-doctor communication, and collaboration for better outcomes.
Have you ever wondered why some heart conditions slip through the cracks? I do. And myocardial bridges are one of those conditions. Join me as I speak with my very own primary care physician, Dr. Thomas Hopkins, more affectionately known as Dr. Tom. He joins us to unpack the mysteries of diagnosing chest pain in the hopes we can catch a symptomatic myocardial bridge sooner rather than later. With a journey that spans from aspiring heart surgeon to passionate primary care physician, Dr. Tom brings a unique perspective on cardiac health. This episode uncovers the critical importance of educating both patients and healthcare providers about myocardial bridges—a frequently misdianosed but potentially fatal condition. Dr. Tom walks us through a comprehensive approach to diagnosing chest pain, ensuring that no deadly condition is overlooked. From initial assessments to advanced diagnostic tests, Dr. Tom explains the systematic pathway to accurately diagnose cardiac conditions from the perspective of a primary care physician or general practitioner. We delve into the limitations of primary care settings and the indispensable role of timely referrals to cardiologists. The urgency of quick action is highlighted, especially when conditions like myocardial bridging are suspected. This episode is a must-listen for anyone eager to understand the nuances of cardiac diagnostics and the vital need for vigilance in recognizing heart issues, especially if you or a loved one are experiencing chest pain that makes no sense. Effective communication between patients and their physicians is paramount for accurate diagnosis and treatment. Dr. Tom emphasizes the importance of patients sharing their symptoms, risk factors, and behaviors openly with their doctors. He provides key questions to guide these conversations, ensuring timely interventions and specialist referrals. This episode not only highlights the clinical significance of myocardial bridges but also underscores the value of expressing gratitude for medical support. By fostering mutual respect and teamwork in the patient-doctor relationship, the greater the likelihood the condition can be diagnosed in a timely and proper manner to get the proper treatment before something more serious occurs. It's both Dr. Tom's and you know my belief, that there are many out there who are going to experience only one symptom from a myocardial bridge and that's sudden cardiac arrest. Starting the conversation correctly from the beginning may just help save lives and improve lifestyles sooner for those getting proper diagnosis. Here's the website link to: Dr. Thomas Hopkins To learn more about myocardial bridges visit: My Imperfect Heart To see our guests you can watch Imperfect Heart on YouTube Episode Highlights(00:05 - 01:05) Medical Journey Towards Cardiac Surgery (09:55 - 11:15) Diagnostic Tests for Chest Pain (14:54 - 16:05) Patient-Doctor Interaction for Proper Diagnosis (23:39 - 24:57) Addressing Patient Honesty and Care Coordination (30:34 - 31:49) Connecting Patients With Myocardial Bridge Chapter Summaries (00:00) Diagnosing Chest Pain in Patients This chapter welcomes Dr. Thomas Hopkins, also known as Dr. Tom, to discuss his transition from aspiring heart surgeon to primary care physician and his ongoing interest in cardiac health. We explore the topic of myocardial bridges—a condition not widely known even among medical professionals—and emphasize the importance of educating both patients and healthcare providers. Dr. Tom outlines the systematic approach his practice takes when a patient presents with chest pain, emphasizing the need to consider a broad range of potential causes, from cardiac issues to gastrointestinal and mental health factors. The goal is to ensure nothing potentially deadly is overlooked, using a comprehensive checklist that includes listening to the patient's story, assessing risk factors, and understanding behaviors that might contribute ...
Can a legal case become a catalyst for groundbreaking medical research? In this episode, I sit down with Dr. Ingela Schnittger, a trailblazer in the field of cardiology, as she recounts how a tragic courtroom moment ignited her passion and led her to a pivotal collaborative effort at Stanford. Dr. Schnittger explains the complexities of myocardial bridges and the vital role a multidisciplinary team plays in accurately diagnosing and treating this often-misunderstood condition. You'll gain insights into the significance of combining expertise from cardiologists, radiologists, and surgeons to tackle the intricacies of this cardiac anomaly. We'll touch on the latest technology in myocardial bridge treatment and the meticulous surgical interventions pioneered at Stanford. Dr. Schnittger shares the precision required in preoperative evaluations and the importance of thorough diagnosis to ensure successful surgical outcomes. We delve into the potential widespread prevalence of myocardial bridges and their significant impact on cardiac events, emphasizing the need for expert care and comprehensive preoperative mapping for proper diagnosis. Dr. Schnittger's discussion underscores the critical role of experience and dedication within the surgical team at Stanford, highlighting their exceptional track record over the past 10+ years. We'll close with the patient-centric process of cardiac rehabilitation and recovery, crucial for post-surgery. Dr. Schnittger offers valuable guidance on structured rehab programs, medication management, and the importance of a gradual return to normal activities. We also touch on the importance of family medical history in diagnosing and managing heart conditions. Concluding with a heartfelt exchange of gratitude and appreciation, this episode underscores the profound impact of Dr. Schnittger's work on countless lives. If you've just been diagnosed, or believe you need to get properly diagnosed to identify or eliminate the possibility of a myocardial bridge, this conversation will give you everything you need to take the next steps with your cardiologist. If you know of someone suffering from undiagnosed chest pain, angina or heart attack like symptoms, please share this episode with them. If you have a doctor or worse yet, cardiologist that is uncertain of the impact of a myocardial bridge, or possibly doesn't accept them as symptomatic at all, be certain to share this episode with them. Share all the episodes with them. As always, stay positive and grateful. There's hope for what it is you're going through. For more information, visit www.myimperfectheart.com Chapter Summaries (00:00) Understanding Myocardial Bridges and Treatment Dr. Schnittger discusses his journey into myocardial bridges, the importance of a multidisciplinary team, and advancements in surgical intervention. (18:42) Advancements in Myocardial Bridge Treatment Myocardial bridge treatment at Stanford involves precise preoperative evaluations and a dedicated surgical team with a successful track record. (34:32) Myocardial Bridge Diagnosis and Treatment Stepwise approach to treating myocardial bridges with medications, surgery if needed, and advancements in non-invasive diagnostic tools. (50:21) Cardiac Rehab and Recovery Guidance Cardiac rehab for endothelial dysfunction and myocardial bridges, importance of structured programs and gradual recovery, managing professional stress, and proactive family medical history. (57:25) Gratitude for Benefactor and Speaker Host expresses gratitude for Dr. Schnittger's positive impact, while Dr. Schnittger regrets not meeting in Stanford but is happy to see the host thriving.
In this episode, I attempt to reveal some lesser known truths of myocardial bridges as I unravel the complexity of heart-related symptoms that often go misdiagnosed. You'll gain a deeper understanding of the disparity between the prevalence of this condition and the surprisingly low number of patients who receive accurate diagnoses. Did you know one-in-four of us is likely to have a myocardial bridge? How many people may actually be dying as a result of an undiagnosed bridge? Amidst the statistics that paint heart disease as the leading cause of death, I'll shed some light on the silent battles many face with undiagnosed chest pain, shortness of breath, and the emotional toll of not knowing. This episode is meant to outline and guide those affected or suffering from chest pain or shortness of breath or chronic fatigue towards recognizing the proper signs and advocating for themselves in a healthcare landscape that can sometimes overlook such crucial ailments. With options ranging from traditional sternotomy to state-of-the-art robotic surgery for "unroofing" a myocardial bridge, guests have shared their personal anecdotes of navigating these decisions and the life-changing moments post-surgery. With myself included, we're all testament to the fact that the surgery does benefit us and it needs to be more accessible for those in need. Let the "cycle to diagnosis" support you in your journey giving you a list of action items that should lead you to your resolution of the condition or at the very least a proper diagnosis of your condition. I have no doubt proper diagnosis of a myocardial bridge saves lives through the ripple effect of heightened recognition and medical progress.
Join me as I sit down with Kathy Hoseth, a remarkable woman with a compelling story of heart health struggles and self-advocacy. From her early childhood days experiencing unexplained chest pains to the complex journey of navigating the healthcare system as an adult, Kathy's narrative is a testament to resilience. She candidly shares the dismissive attitudes of medical professionals she encountered and how she persisted in the search for a diagnosis, shedding light on the crucial need for patients to listen to their bodies and advocate for their health. As her tale unfolds, she reveals the discovery of a myocardial bridge that was overlooked for years. Her story takes a hopeful turn with the identification of her condition, leading to the "unroofing" surgery that set her on a path to recovery. This episode gives you a front-row seat to the inspiring account of Kathy's medical journey, her relentless pursuit of answers, and the life-changing operation that ultimately improved her quality of life. We explore the significant role of having a supportive medical team and the importance of being heard when it comes to one's health. A staunch reminder that to be heard, one needs to speak up and in the case of myocardial bridges, the voice needs to be, not only spoken loudly, but confirmed it was heard. Kathy's experience is more than just a medical case; it's a narrative that underscores the power of patient advocacy and the difference it can make. As she shares her post-surgery life and the joys of being a grandmother of eight, Kathy's story serves as an encouragement to anyone facing health challenges. Her contributions to raising awareness are invaluable, reminding us all to never overlook symptoms and to push for timely intervention. This is a heartwarming episode that celebrates Kathy's journey, the surgical progress to correct a myocardial bridge and the collective power of shared experiences in healing and recovery.
Embark on a mission dirven purpose with Jed Baker, as he narrates his battle with enigmatic health symptoms, culminating in the pivotal uncovering of a myocardial bridge—an anomaly that remained undiagnosed for an agonizing duration. This episode threads through Jed's encounters with the labyrinth that is modern healthcare, where he met his "surgery sisters," Kaylin Kellert and Liane Aigner, and concurrently, they braved parallel surgeries. Through his voice, learn of multiple medical opinions, the delicate decision-making in cardiac care, and the profound importance of being an informed and proactive patient. With clarity and vulnerability, Jed opens up about his decision to pursue heart surgery over less invasive treatments, guided by Dr. Theodoris Kofidis. His pursuit of multiple medical opinions illuminates the complexities of cardiac treatments and the lifesaving power of perseverance. As we follow his journey, Jed's recovery unfolds as a testament to resilience, offering a beacon of hope to those navigating similar health challenges. His insights into the emotional and physical rigors of heart surgery provide invaluable guidance for those at the crossroads of such weighty medical decisions. Concluding with a powerful reflection on the role of hope in confronting health adversities, we draw parallels with Mark Durand's research on parental hope and the impact of community support in fostering optimism. Jed's story is more than a medical case study; it's a narrative of human tenacity and the shared quest for healing. His candid discussion not only educates but also inspires, emphasizing the necessity of hope, community, and informed choice when facing the daunting prospect of heart surgery. To learn more about Jed, you can visit his website - https://www.socialskillstrainingproject.com/about You can see more of Jeds drumming and performance on the FB page: https://www.facebook.com/BigTrainSoul/videos/2052865561543110/?extid=CL-UNK-UNK-UNK-IOS_GK0T-GK1C&ref=sharing&mibextid=w8EBqM Be sure to visit "Imperfect Heart" on YouTube https://www.youtube.com/watch?v=yfqomNr--Rc&list=PLv9422orflyUbG-w1iVfzbzW9LIcgX_Eo if you would like to see the guests. To learn more about Myocardial Bridges visit https://www.myimperfectheart.com/
Have you ever marveled at the precision of robotic cardiac surgery or pondered the moral complexities hidden behind the robot's arm? Dr. Guy, a cardiac surgeon with a unique military background, joins us for a compelling exploration of this life-saving medical discipline, blending his battlefield-honed skills in teamwork and strategic thinking with the meticulous demands of heart surgery. We venture into the nuances of robotic vs. traditional sternotomy in unroofing procedures, weigh the critical balance between patient survival and health resolution, and unwrap the layers of decision-making that guide the evolution of medical practice. Our journey through the heart's intricacies doesn't stop at the operating table. Dr. Guy opens up about the rigorous diagnostic process that informs the path to surgery, sharing candid reflections on the ethical tension between alleviating patient suffering and avoiding unnecessary risks. The challenge of accurate diagnosis and the sobering fact that medical science isn't infallible are laid bare, illustrating a surgeon's commitment to ethical practice and the human side of medicine that's driven by a desire to heal, not just to operate. As we close, the conversation takes a turn towards the personal, revealing how Dr. Guy's own leisure pursuits provide respite from the operating room's intensity. We also shine a light on the collaborative efforts at the Georgia Heart Institute and the importance of patient-driven care. Our discussion culminates in a tribute to the altruism pervading the medical field where patient empowerment and informed dialogue stand as the cornerstones of quality healthcare. For more information visit Georgia Heart Institute by visiting www.NGHS.com You can also call Dr. Guy @ 770-219-7099 To learn more about myocardial bridges or review prior episodes, visit www.myimperfectheart.com
Join me as I embark on a heartfelt journey with my guest Louis Merlin, who bravely shares his personal struggle with his myocardial bridge—a condition we know is often overlooked or mistakenly dismissed as benign. Louis opens up about the frightening onset of symptoms like chest pain and dizziness, which led to a maze of ER visits and the haunting suggestion that it was all just anxiety. Despite inconclusive test results, the true nature of his symptoms remained a mystery until the exertion in 2022 made the connection to his heart condition undeniable. We'll navigate the complex and often misunderstood world of chest pain diagnosis. We'll also take a closer look at one patient's distressing quest for answers, starting with vague aches and escalating to an emergency collapse. The frustration of inconclusive traditional tests is palpable, as we discuss the elusive diagnosis that spans potential issues like vasospasms and microvascular disease. This conversation underscores the importance of perseverance and the emotional toll of seeking multiple medical opinions when dealing with mysterious cardiac symptoms. Hear about the transformative decision to pursue surgery abroad in Greece with Dr. Theodoros Kofidis, as we delve into the life-changing choice made in the face of debilitating symptoms and rejection in the states. Our discussion reveals the practicalities and emotional considerations of seeking treatment overseas, the supportive care at St. Lukes Hospital, and the challenges of recovery. Louis leaves us with an empowering reminder of the importance of self-advocacy and the strength found in support groups, as we celebrate the courage and shared experiences within our community, including his inspiring return to an active lifestyle. St. Lukes Hospital with Dr. Kofidis Tkofidis@hotmail.de (Professor Kofidis email)
Discover the power of perseverance and the importance of advocating for your own health as we share Kelly's captivating story, an individual who transformed her struggle with undiagnosed heart issues into a journey of self-discovery and medical triumph. At the young age of 13, Kelly's life took a dramatic turn in a karate class when she first experienced symptoms that would lead her on a path filled with challenges, misdiagnoses, and a relentless pursuit for answers. Her experiences shed light on the complexities of navigating the healthcare system and the courage it takes to stand up for oneself when faced with skepticism from professionals who should be allies. Feel the frustration and eventual elation as Kelly, undeterred by failed multiple ablasions, discovers and then connects with the expertise at Stanford to tackle her condition head-on. Her story is not just about the physical ailment of supraventricular tachycardia and a myocardial bridge but also about the emotional battle with it all, including the insurance companies, the exhausting appeals, and the sweet success of validation. Kelly's journey highlights the critical role of patient advocacy and the difference it can make in receiving proper care, offering hope and guidance for those who may find themselves in similar, overwhelming situations. Her constant and consistent belief in her faith and her fortitude, would yield incredible transformation from living with decades of pain to now embracing an active lifestyle post-unroofing surgery. Her narrative not only provides solace but also inspires; there is hope if you're suffering from a myocardial bridge and with the right support and determination, a quality life after years of furstration, is more than just possible—it's within reach. Please give us a positive review, leave a comment and subscribe. For more information, visit www.myimperfectheart.com. If you would like to participate and share your story on the program, you can email me at jeff@hearmenowstudio.com. If you would like to ask a question and have it played answered on the program, you can leave me an audio message via DM on the facebook group page. Thank you.
I never imagined that a story of heart surgery could come with a side of laughter and gourmet hospital food. Yet here we are, with Kaylin Kellert, an Air Force veteran who, only a week post sternotomy and unroofing surgery, brings an inspiring tale of self-advocacy, resilience, and a surprising craving for Stanford's vanilla pudding. Kaylin's journey through the confusion of heart attack-like symptoms to the clarity of diagnosis with a myocardial bridge is as enlightening as it is emotional. She highlights the power of community after bonding with her "surgery soulmate" Liane Aigner, both finding solace and support on their concurrent paths to recovery. Kaylin's progress reveals the complexities of navigating the military medical system and the importance of pushing for the care you deserve. Transforming a dire medical narrative into one of hope and humor, this episode isn't just about the trials of surgery but also about embracing the rollercoaster that follows. Kaylin's post-op revelations—from the unexpected delight of hospital dining to the bewilderment of waking up with no memory of the operation or the pleasure of having the chest tube removed—offer a candid look at recovery's unpredictable nature. We share in her moments of disorientation, the astonishingly swift two-and-a-half-hour surgery, all in, and the simple post-surgery comforts that can mean the world. Her positive mindset, the role of faith, and the belief that life's events unfold 'for you'—not 'to you'—are powerful reminders for anyone facing their own battles. Her perspective is that of someone much further along in life experience as her age belies her wisdom and outlook. This is certainly an episode that's as about as unorthodox as a heart patient eagerly anticipating the appeal of their hospital bed. For more information about Imperfect Heart or Myocardial Bridges, visit www.myimperfectheart.com Be sure to join the myocardial bridge support group facebook page as well to see Kaylin's post discussed in the program as well as others going through the same issues we all have been through.
Never before have I had a conversation with somebody only days from their surgery sharing their story and their thoughts on a life-changing and controversial procedure that lies so closely ahead. Embark on the journey with Liane Aigner as she stands on the cusp of a transformative heart surgery, revealing the highs and lows of her battle with a myocardial bridge. Her candid narrative displays the emotional whirlwind from the onset of disturbing symptoms to the relief of an accurate diagnosis, emphasizing the crucial role of self-advocacy in navigating the healthcare system. Discover how her story is not just one of medical challenges but also of unwavering perseverance and the profound impact of community support as she prepares for her upcoming procedure. If you've made it to and through surgery, you'll closely relate. If you're still in the process of diagnosis and scheduling, this is a textbook case from someone with a wonderful mindset. As Liane steers us through the complexities of mental and physical preparation for her heart surgery, she offers an invaluable roadmap for anyone facing a similar situation. Her approach to dietary changes, the serenity she finds within her faith community, and the logistics of arranging personal affairs pre-surgery underscore the multifaceted aspects of bracing for a life-altering medical event. You'll grasp the sometimes overlooked yet vital steps that fortify one's resilience and readiness to embrace post-operative recovery. Leanne's remarkable openness just days before her surgery demonstrates courage and hope. Her experience underscores the importance of persisting in the search for medical answers and the transformative power of finding a doctor who looks beyond the symptoms to address the underlying issues. As we send heartfelt wishes for her myocardial bridge unroofing procedure, we're reminded of the collective wisdom and strength found in the solidarity of those sharing in the journey towards healing and health. In a surprise twist, we've also found that she has connected with Kaylin Kellert, another Imperfect Heart family member, having her unroofing procedure the same day, in the same hospital with the same doctor. That would be January 23rd, 2024 at Stanford with Dr. Jack Boyd. They'll be in recovery together and more than likely, able to see each other during their stay. That, is truly a blessing for a reason and certainly a reminder, there are no coincidences. Enjoy her story, subscribe to the program and please give us a positive review if you appreciate what we're doing. For more details on myocardial bridges, be sure to visit the website, www.myimperfectheart.com
You're standing at the crossroads of cardiac care and ready to make the decision for your "unroofing" procedure. From the conversations I've had with many of our listeners, it's clear the sternotomy itself creates more fear than the actual heart surgery it allows. You may have options for a minimally invasive procedure or even robotic procedure but the most common of all open heart surgeries is the sternotomy. There are over 750,000 performed each year! Whether a choice or a necessity, this episode will help you along the way in better understanding every detail of this procedure that provides the surgeon access to the heart for the corrective process. It will also help you evaluate the options with more clarity of the sternotomy by comparison to minimally invasive and robotic procedures. Stanford's Dr. Mark Francis Berry will take us on a virtual step-by-step journey from the very beginning of prep for the sternotomy, to the sawing open of the chest and the procedure's delicate, choreographed movements. With the precision of a maestro, he conducts us through the procedure's every step, easing the trepidation that often accompanies the thought of heart surgery and providing solace with his clear, calming insights. By educating us in the process, fear of the unknown dissipates and we learn the sternotomy may not be as frightening or painful as originally thought. Discover why the sternum's steadfast wiring might just be the unsung hero of your recovery, and how advancements in pain relief are changing the postoperative landscape. Finally, the conversation moves to the oft-ignored psychological battles patients face, underscoring the imperative of managing not just physical pain but emotional turbulence to truly address the impacts of the procedure. The episode provides the knowledge necessary for the power of patient advocacy and informed decision-making. Whether you're a patient or supporting someone who is, the episode highlights the importance of posing questions and the strength found in understanding one's choices. Dr. Barry's experiences illuminate the various surgical paths available and inspire confidence on the road to wellness. For more information on myocardial bridges, visit www.myimperfectheart.com
My own heart skipped a beat upon hearing Dr. Peggy DeLong's tales of loss and fear. Peggy, a beacon of resilience, opens up about the profound losses that shaped her life—her fiancé and her father both taken too soon; Her father by a heart condition, her fiance by cancer. Her very own terrifying brush with what she feared was a heart attack rekindled her commitment to gratitude, a practice she has long championed. The power of embracing gratitude to replace fear is exemplified as Dr. DeLong discusses strategies to counterbalance fear, stress and anxiety for us, especially during the emotionally charged holiday season. We examine the shared exercise of "team gratitude," where partners enrich their connection by daily acknowledgments of appreciation, and explore how gratitude can serve as a compass to steer us away from the shadows of fear. Peggy's insights on the delicate dance between honoring our fears and not allowing them to consume us are a testament to the strength that comes from vulnerability and her belief that we cannot truly experience joy without having first gone thru the fear or pain of a situation. As festive lights twinkle, reminding us of the joys and challenges the holiday season brings, I hope this episode brings a gift or understanding of a practice we all can use to relieve some of the pressure, anxiety and fear of the unknown we may be dealing with. Peggy's journey reminds us all of the small steps we can take towards maintaining hope, and the profound impact a simple act of gratitude can have on our lives. If the fear is particularly distracting at any given time, why not buy a stranger, well... a cup of hazelnut coffee? I am personally grateful for all of you, my family of "Imperfect Hearts", that are doing what you must to get your symptoms relieved, advocating for yourself and helping others along the way. Have a blessed holiday season with friends and family and here's to a happy, healthy and prosperous new year in 2024. From the bottom of my Imperfect Heart, Thank you. For more information on Myocardial Bridges, visit www.myimperfectheart.com
Prepare to journey through the operating room doors as I give you a front row seat to a robotic unroofing surgery with Dr. Balkhy at the University of Chicago. I find myself amazed at the intense emotion of watching this procedure firsthand as I know the outcome and what a miracle it is. My partner for the day, is Dr. Kumaran Mangalam, a cardiothoracic surgeon from Bangalore, India who practices for Narayana Health. I'll take you right into the depths of the operating room, immersing you in the intricate details of the unroofing procedure as best I can as a layman. You can feel the focus as Dr. Balkhy maneuvers a robotic system, expertly unroofing a myocardial bridge, while explaining how the stabilizer holds the heart in place. I hope to paint a vivid picture of the complex art and skill of removing muscle tissue from the artery. Despite the nature of the procedure, it's interesting how music creates an ambiance in the room. A calming wave in the sea of something so serious. As I culminate the surgical journey, I reflect on the impact and potential of robotic surgery for patients suffering from myocardial bridges. Hear from Dr. Balkhy and Dr. Kumaran on the need for increased awareness and education about this condition within the medical community, while also contemplating the life-threatening complications it could cause. Finally, I hope to build a movement advocating for the adaptation of DaVinci XI machines to facilitate these surgeries. I'll have more in future updates on what that's going to look like. We can make a difference with our efforts to educate more cardiologists and surgeons about the value of robotic unroofing given the proper circumstances and we need to do what we must to gain the support of the DaVinci robot manufacturer, Intuitive, to retrofit the stabilizer to the newest machines, including the XI models. To connect with Dr. Kumaran, his information is below. Dr. Kumaran Mangalam Narayana Health Bangalore, India email: drtkumaran@gmail.com PH: +91 829-607-5465 For more information, you can visit www.myimperfectheart.com
From one Imperfect Heart to another, may your day be full of family, friends and gratitude. Happy Thanksgiving. Today, is a great day to be alive.
You likely can relate navigating life's ups and downs, then suddenly, your heart throws you an unexpected curveball. My guest, Emily Tedore, a 39-year-old mother of two, courageously steps into our conversation to unravel her heart health journey. She takes us through her experience, starting from a sudden chest pain at the gym to a heart catheterization and eventually an unroofing procedure to treat her myocardial bridge. That first episode was a heart attack that led to the steps toward her unroofing procedure. Emily shines a light on the emotional roller coaster her diagnosis process was and how it changed her life's viewpoint dramatically. Our discussion also uncovers the period of anticipation leading to Emily's surgery at Stanford, a time marked by uncertainty, worry and anxiety. Emily offers a look into this challenging period, retracing her steps through the arduous process of getting medical records, securing her surgery approval, and the distress that came with pausing her exercise routines. Emily's surgery, scheduled just before Christmas, meant spending the festive season away from family due to her health condition. A testament to the her resilience, Emily's story paints a vivid picture of how family support can anchor us through life's most difficult times. As we dig deeper into Emily's experience, we explore her recovery process post-surgery, emphasizing the indispensability of self-care and adherence to exercise routines. Emily's narrative serves as a reminder to listen to our bodies, even when our recovery journey presents hurdles. Our conversation further addresses the anxiety and fear that often accompany heart conditions, providing insights into coping with emotional stress, finding supportive communities, and learning to value life. A perfect episode to lead us into the holiday season. As promised in the episode, if you're in the Eastern Sierra or western part of Nevada, Carson Tahoe Health is where Emily's cardiologist practices. Her name is Dr. Lorrel Toft and the number for the department is 775-445-7650. The website for the hosipital is www.carsontahoehealth.com To learn more about Myocardial Bridges and the surgery that relieves the debilitating symptoms a bridge may cause, visit www.myimperfectheart.com
Join me for a conversation with Professor Theo Kofidis, Head of the Department of Cardiothoracic and Vascular Surgery at the National University Hospital of Singapore, as we explore the complexities of myocardial bridges and minimally invasive heart surgery. An expert in his field and a renowned cardiac surgeon, Professor Kofidis discusses the importance of patient education, understanding myocardial bridges, and the various approaches to treatment. You'll hear about the impact of global perspectives on this condition, from Europe's slower acceptance to the influence of the United States on Kofidis's approach to innovation and patient outcomes. Listen as we take a closer look at the intricacies of treating a myocardial bridge. We talk about the process of unroofing and treating our condition, with a keen focus on minimally invasive procedures. We discuss the pros and cons of access to the heart and emphasize the need for customized patient-centric approaches. We also explore the challenge in diagnosing myocardial bridges due to a lack of scientific understanding of the condition, stressing the importance of cautious and conservative treatment approaches. We'll close with a glimpse into some of the pastimes this surgeon enjoys when he does get a break from the process of what can be an incredibly stressful career. You might be surprised. To reach Professor Kofidis his email is tkofidis@hotmail.de For more information on Myocardial Bridges be sure to visit www.myimperfectheart.com
What if you could peer into the future of cardiac care and discover a method for Myocardial Bridge "unroofing" surgery that offers less pain, less scarring, and faster recovery? That future is now. Welcome to the new world of robotic cardiac surgery, as revealed by our guest, Director, Robotic and Minimally Invasive Cardiac Surgery at University of Chicago Medicine, Dr. Husam Balkhy. He shares his wealth of knowledge with us, unraveling his history and the potential of robotic surgery in treating heart conditions, specifically myocardial bridges. We discuss the intricate landscape of the heart, how different perspectives can help access deep coronary arteries or Myocardial Bridges and delve into the technicalities of unroofing myocardial bridges robotically. A process that requires precision, skill, favors experience and proper patient selection. Dr. Balkhy also shares the hurdles and rewards of robot-assisted surgery, emphasizing the pivotal role of a stabilizer in ensuring successful operations. This very stabilizer is currently being phased out and may not be replaced, rendering this procedure impossible and therefore no longer able to be performed going forward. Whether you're seeking to understand myocardial bridges, explore treatment options, or better understand a diagnosis, this episode will leave you with a deeper comprehension of robotic cardiac surgery's pioneering world and your options. Cutting edge? Not so much and happy to say. For more information about Dr. Balkhy, click here To inquire about possible robotic surgery for your Myocardial Bridge call Ruth Buckner at Dr. Balkhy's office: 773-834-1612 To voice your concern about the deletion of the robotic stabilizer, you can contact Intuitive Surgical and watch for more information from me on the website, My Imperfect Heart
Since you're listening to this podcast, you've likely got symptoms of a Myocardial Bridge or you're post-surgery and have been “unroofed”. In either case, whatever your symptoms are or were, a heart attack, shortness of breath, severe angina or chest pain, for most of us, that's traumatic. On-going concern pre-surgery about whether or not you're going to die, or post-surgery concern about what will life be like now and the depression that so often follows are what we're addressing in this episode. My guest today, Dr. Joyce Mikal-Flynn, overcame a death experience surviving over 20 minutes of CPR. Through a harrowing journey of resilience and determination, she created a path to recovery, known as Metahabilitation, turning trauma into transformation. Dr. Mikal-Flynn walks us through her journey post the life-altering event, inspiring us with her story of grit and perseverance. She recognized life as she knew it had changed forever and embraced her newfound strength, eventually earning her Master's and Doctorate degrees. Her research is eye-opening, showing how people can not only survive but thrive after trauma. Through her Metahabilitation process, she helps us understand how positive thinking, self-awareness, and spirituality play crucial roles in the aftermath of such events. Discover the various stages of “Metahab” and how they have helped Dr. Mikal-Flynn and others transform their lives after trauma. For more information about Dr. JMF and Metahab visit www.metahab.com. To learn more about Myocardial Bridges and prior episodes of the podcast visit www.myimperfectheart.com. For support from others with Myocardial Bridges be sure to join the private Facebook page, "Myocardial Bridge Support Group".
Join me as I reflect and celebrate several anniversaries, acknowledge the emotional and mental shifts post-surgery, and advocate for proper diagnosis and treatment of our condition. A treated myocardial bridge lifestyle is significantly improved and both pre and post surgery requires positivity, persistence, and advocating for yourself. Remember, you are not alone and I encourage you to reach out to share your story with me and help raise awareness of our condition for the benefit of so many others. I welcome your questions and engagement through the website, podcast, and social media. I appreciate all the support and encouragement and hope my efforts with your help, make a difference. For more information, visit www.myimperfectheart.com To watch a short video of my death ride experience: https://www.youtube.com/watch?v=z8J3KAAwOB4&t=22s
In this second part of Amanda's journey, a relatively successful unroofing procedure leaves a residual problem related to the sternotomy. Of course, given the nature of the process she's been through with all the twists and turns, why should the outcome go smoothly? After all, this is one of the most unusual stories I've heard from our guests. Now, nearly a year post-surgery, the final outcome on what to do about the sternum is still undecided. As Amanda makes her decision to correct her "non-union", we'll be sure to share once we know. You can find Amanda on her social platforms: Instagram - hrt_of pearl, Twitter - @amanda_pearlman, Facebook - Amanda Pearlman To learn more about Myocardial Bridges visit www.myimperfectheart.com and be sure to join the Facebook group on the Myocradial Bridge Facebook page.
Amanda Pearlman was training to be a law enforcement officer when during Police Academy, a heart attack took her out of contention. But that's just the tip of the iceberg as unbelievable diagnoses compounded the real issue of a Myocardial Bridge. How she eventually got to her unroofing surgery is fable enough but what happens afterward, just when it seemed everything had finally been taken care of, is hard to fathom. This first part of a two part episode, takes us up to the correct diagnosis of her Myocardial Bridge and leads into part two, the surgical outcome and the unfortunate reality that everything didn't go as planned. You can find Amanda on her social platforms: Instagram - hrt_of pearl, Twitter - @amanda_pearlman, Facebook - Amanda Pearlman To learn more about Myocardial Bridges visit www.myimperfectheart.com and be sure to join the Facebook group on the Myocradial Bridge Facebook page.
Many of the stories to date, mine included, have had relatively good outcomes with little drama in the post-surgical process to recovery and final outcomes. We all know everything can't always go right and I think it's important we go from thinking that's the case to sharing stories that were met with some adversity as well. Everything can't always go right. Nothing is perfect. And sometimes it can go terribly wrong. Boots Knighton, an educator, an athlete, author and podcaster has quite the story to share as she had to advocate and navigate getting her "unroofing" surgery during Covid as well as dealing with a reconstruction issue as a result of the surgery. She shares thoughts on mental health and nutrition but has an incredible solution to the mistake her doctor made that is a lesson we all can learn from. You can find Boots podcast "The Heart Chamber" wherever you get your podcasts. Website: "www.theheartchamberpodcast.com" Instagram: @theheartchamberpodcast. LinkedIn: Suzanne Boots Knighton You can find all the "Imperfect Heart" episodes on the website "www.MyImperfectHeart.com" Be sure to check out and follow us on Instagram: @imperfectheartpod
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