Podcasts about motor neurone disease association

CapeTalk’s Sara-Jayne Makwala King (in for Clarence Ford on Views and News) is joined by Dr Lienka Botha from the Motor Neurone Disease Association of SASee omnystudio.com/listener for privacy information.

Today our expert panel looks back at July and discuss any new developments at True Potential, this includes all AI & technology updates that enhance our service by harnessing data to improve your ability to create a pension plan. We also have an update from the Investment Management team at a time of market volatility, and review any questions that the relationship management team have been asked surrounding fiscal policy under the new Labour government.  Finally, we are proud to celebrate the efforts of our team in raising money for this month's charity the Motor Neurone Disease Association.

Naomi Fitzgibbon (Director of Nursing and Services at the Irish Motor Neurone Disease Association) speaks to Wendy marking the passing of Former RTE Journalist Charlie Bird.

Gabby and Kenny Logan talk with Rob about their sporting pasts in Gymnastics and Rugby Union and they pay tribute to a late rugby union star Doddie Weir.With statistical information from the Motor Neurone Disease Association.

For this week's bonus podcast, we have a double whammy of interviews for you! First up, we're joined by Daniel Brocklebank, who plays Billy Mayhew. We chat to Dan about his involvement in the current MND storyline as well as some of his other highlights during his time on the cobbles. After that, we speak to Chris James from the Motor Neurone Disease Association about the work that the charity has done with Coronation Street to help bring Paul's heartbreaking story to the screen. If you'd like to find out more about the Motor Neurone Disease Association, including how to help support their cause, visit https://www.mndassociation.org

Welcome to Episode 17 of The RPG Years! This week, Bill catches up on the latest going on's with the show and has a crossover with the Passalong podcast! Strap in for some RPG goodness! The RPG After Years is hosting an RPG Club! It's like a book club, but with RPGs, and we hope all of you play along! The RPG Club for Breath of Fire III starts this Sunday 14th May! Goal is to Reach Castle Wyndia by May 28th! New Patreon game!!! Please support the show at ⁠patreon.com/rpgyears⁠ Join us on our Discord server! ⁠discord.gg/3WPBgur⁠ ⁠www.matieralockdown.com⁠ ⁠Materia Lockdown @FF7MLD is fundraising for Motor Neurone Disease Association (justgiving.com)⁠ Watch the show live on Twitch! We typically stream the main episodes at 9am EST on Sundays. Keep an eye out on Twitter and Discord for extra bonus recordings or time changes. It's all at ⁠twitch.tv/rpgafteryears⁠ You can also find Scott on Twitch over at ⁠twitch.tv/the_scott_spot⁠! Send a Carrier Pigeon or Whatever: Twitter: ⁠@RPGYEARS⁠ Personal Twitters:  Rich: ⁠@Hailblue1569⁠, Scott: ⁠@TheScottSpot⁠, Bill: ⁠@Metunnica⁠ Email: ⁠rpgafteryears@gmail.com⁠ Check out our merch store at ⁠https://www.redbubble.com/people/RPGAfterYears/explore⁠ We Can Make This Work Probably Network: This podcast is a production of the We Can Make This Work (Probably) Network follow us below to keep up with this show and discover our many other podcasts!  The place for those with questionable taste! ⁠ProbablyWork.com,⁠⁠Twitter⁠, ⁠Facebook⁠, ⁠Instagram ⁠ @ProbablyWorkEmail: ⁠ProbablyWorkPod@gmail.com⁠ Master list: ⁠https://docs.google.com/spreadsheets/d/13CgtJfptz1S3Da2HUsJDK86SfAIPMGA-Rmi4YZUpTGw/edit?usp=sharing  ⁠

Welcome to Episode 16 of The RPG Years! This week, Bill catches up on the latest going on's with the show and has news round up! Strap in for some RPG goodness! The RPG After Years is hosting an RPG Club! It's like a book club, but with RPGs, and we hope all of you play along! The RPG Club for Breath of Fire III starts this Sunday 14th May! Goal is to  Reach Castle Wyndia by May 28th! New Patreon game!!! Please support the show at patreon.com/rpgyears Join us on our Discord server! discord.gg/3WPBgur www.matieralockdown.com Materia Lockdown @FF7MLD is fundraising for Motor Neurone Disease Association (justgiving.com) Watch the show live on Twitch! We typically stream the main episodes at 9am EST on Sundays. Keep an eye out on Twitter and Discord for extra bonus recordings or time changes. It's all at twitch.tv/rpgafteryears You can also find Scott on Twitch over at twitch.tv/the_scott_spot! Send a Carrier Pigeon or Whatever: Twitter: @RPGYEARS Personal Twitters:  Rich: @Hailblue1569, Scott: @TheScottSpot, Bill: @Metunnica Email: rpgafteryears@gmail.com Check out our merch store at https://www.redbubble.com/people/RPGAfterYears/explore We Can Make This Work Probably Network: This podcast is a production of the We Can Make This Work (Probably) Network follow us below to keep up with this show and discover our many other podcasts!  The place for those with questionable taste! ProbablyWork.com,Twitter, Facebook, Instagram  @ProbablyWorkEmail: ProbablyWorkPod@gmail.com Master list: https://docs.google.com/spreadsheets/d/13CgtJfptz1S3Da2HUsJDK86SfAIPMGA-Rmi4YZUpTGw/edit?usp=sharing  

Welcome to Episode 15 of The RPG Years! This week, Bill takes some needed time off to recover from a rough few weeks. Frost and Kalso combine to give us a big news round up!  Strap in for some RPG goodness! The RPG After Years is hosting an RPG Club! It's like a book club, but with RPGs, and we hope all of you play along! The RPG Club for Breath of Fire III starts this Sunday 14th May! Goal is to  Reach Castle Wyndia by May 28th! Please support the show at patreon.com/rpgyears Join us on our Discord server! discord.gg/3WPBgur www.matieralockdown.com Materia Lockdown @FF7MLD is fundraising for Motor Neurone Disease Association (justgiving.com) Watch the show live on Twitch! We typically stream the main episodes at 9am EST on Sundays. Keep an eye out on Twitter and Discord for extra bonus recordings or time changes. It's all at twitch.tv/rpgafteryears You can also find Scott on Twitch over at twitch.tv/the_scott_spot! Send a Carrier Pigeon or Whatever: Twitter: @RPGYEARS Personal Twitters:  Rich: @Hailblue1569, Scott: @TheScottSpot, Bill: @Metunnica Email: rpgafteryears@gmail.com Check out our merch store at https://www.redbubble.com/people/RPGAfterYears/explore We Can Make This Work Probably Network: This podcast is a production of the We Can Make This Work (Probably) Network follow us below to keep up with this show and discover our many other podcasts!  The place for those with questionable taste! ProbablyWork.com,Twitter, Facebook, Instagram  @ProbablyWorkEmail: ProbablyWorkPod@gmail.com Master list: https://docs.google.com/spreadsheets/d/13CgtJfptz1S3Da2HUsJDK86SfAIPMGA-Rmi4YZUpTGw/edit?usp=sharing  

Welcome to Episode 14 of The RPG Years! This week, Scott comes and Bill conclude the review of the SNES action RPG Terranigma, but will it out score Secret of Mana? Strap in for some RPG goodness! The RPG After Years is hosting an RPG Club! It's like a book club, but with RPGs, and we hope all of you play along! Find out the RPG club winner on next weeks episode! Please support the show at patreon.com/rpgyears Join us on our Discord server! discord.gg/3WPBgur www.matieralockdown.com Materia Lockdown @FF7MLD is fundraising for Motor Neurone Disease Association (justgiving.com) Watch the show live on Twitch! We typically stream the main episodes at 9am EST on Sundays. Keep an eye out on Twitter and Discord for extra bonus recordings or time changes. It's all at twitch.tv/rpgafteryears You can also find Scott on Twitch over at twitch.tv/the_scott_spot! Send a Carrier Pigeon or Whatever: Twitter: @RPGYEARS Personal Twitters:  Rich: @Hailblue1569, Scott: @TheScottSpot, Bill: @Metunnica Email: rpgafteryears@gmail.com Check out our merch store at https://www.redbubble.com/people/RPGAfterYears/explore We Can Make This Work Probably Network: This podcast is a production of the We Can Make This Work (Probably) Network follow us below to keep up with this show and discover our many other podcasts!  The place for those with questionable taste! ProbablyWork.com,Twitter, Facebook, Instagram  @ProbablyWorkEmail: ProbablyWorkPod@gmail.com Master list: https://docs.google.com/spreadsheets/d/13CgtJfptz1S3Da2HUsJDK86SfAIPMGA-Rmi4YZUpTGw/edit?usp=sharing  

Welcome to Episode 13 of The RPG Years! This week, Scott comes out of retirement to help Bill to start the review of the best Mana game ever made! Its the Quintet classis Terranigma! Strap in for some RPG goodness! The RPG After Years is hosting an RPG Club! It's like a book club, but with RPGs, and we hope all of you play along! Next check point is to Nominate the next game on April 16th Please support the show at patreon.com/rpgyears Join us on our Discord server! discord.gg/3WPBgur www.matieralockdown.com Materia Lockdown @FF7MLD is fundraising for Motor Neurone Disease Association (justgiving.com) You can also find Scott on Twitch over at twitch.tv/the_scott_spot! Send a Carrier Pigeon or Whatever: Twitter: @RPGYEARS Personal Twitters:  Rich: @Hailblue1569, Scott: @TheScottSpot, Bill: @Metunnica Email: rpgafteryears@gmail.com We Can Make This Work Probably Network: This podcast is a production of the We Can Make This Work (Probably) Network follow us below to keep up with this show and discover our many other podcasts!  The place for those with questionable taste! ProbablyWork.com, Twitter, Facebook, Instagram @ProbablyWorkEmail: ProbablyWorkPod@gmail.com Master list: https://docs.google.com/spreadsheets/d/13CgtJfptz1S3Da2HUsJDK86SfAIPMGA-Rmi4YZUpTGw/edit?usp=sharing  

Welcome to Episode 12 of The RPG Years! This week, Bill covers the final segment in the Final Fantasy 12 RPG Club! We start in the after the events at the great crystal and then get our god killing on... killing gods with the power of friendship like every FF game! Strap in for some RPG goodness! The RPG After Years is hosting an RPG Club! It's like a book club, but with RPGs, and we hope all of you play along! Next check point is to Nominate the next game on April 16th Music in this episode: ReMix: Final Fantasy XII "Crystal Gradient" - OC ReMix Please support the show at patreon.com/rpgyears Join us on our Discord server! discord.gg/3WPBgur www.matieralockdown.com Materia Lockdown @FF7MLD is fundraising for Motor Neurone Disease Association (justgiving.com) Watch the show live on Twitch! We typically stream the main episodes at 9am EST on Sundays. Keep an eye out on Twitter and Discord for extra bonus recordings or time changes. It's all at twitch.tv/rpgafteryears You can also find Scott on Twitch over at twitch.tv/the_scott_spot! Send a Carrier Pigeon or Whatever: Twitter: @RPGYEARS Personal Twitters:  Rich: @Hailblue1569, Scott: @TheScottSpot, Bill: @Metunnica Email: rpgafteryears@gmail.com Check out our merch store at https://www.redbubble.com/people/RPGAfterYears/explore We Can Make This Work Probably Network: This podcast is a production of the We Can Make This Work (Probably) Network follow us below to keep up with this show and discover our many other podcasts!  The place for those with questionable taste! ProbablyWork.com,Twitter, Facebook, Instagram  @ProbablyWorkEmail: ProbablyWorkPod@gmail.com Master list: https://docs.google.com/spreadsheets/d/13CgtJfptz1S3Da2HUsJDK86SfAIPMGA-Rmi4YZUpTGw/edit?usp=sharing  

Welcome to Episode 11 of The RPG Years! This week, Bill covers the latest segment in the Final Fantasy 12 RPG Club! We start in the an ancient city then chat with space ghosts. Strap in for some RPG goodness! The RPG After Years is hosting an RPG Club! It's like a book club, but with RPGs, and we hope all of you play along! Next check point is to Finish the Game - due April 2nd Please support the show at patreon.com/rpgyears Join us on our Discord server! discord.gg/3WPBgur www.matieralockdown.com Materia Lockdown @FF7MLD is fundraising for Motor Neurone Disease Association (justgiving.com) You can also find Scott on Twitch over at twitch.tv/the_scott_spot! Send a Carrier Pigeon or Whatever: Twitter: @RPGYEARS Personal Twitters:  Rich: @Hailblue1569, Scott: @TheScottSpot, Bill: @Metunnica Email: rpgafteryears@gmail.com Check out our merch store at https://www.redbubble.com/people/RPGAfterYears/explore We Can Make This Work Probably Network: This podcast is a production of the We Can Make This Work (Probably) Network follow us below to keep up with this show and discover our many other podcasts!  The place for those with questionable taste! ProbablyWork.com,Twitter, Facebook, Instagram @ProbablyWorkEmail: ProbablyWorkPod@gmail.com Master list: https://docs.google.com/spreadsheets/d/13CgtJfptz1S3Da2HUsJDK86SfAIPMGA-Rmi4YZUpTGw/edit?usp=sharing  

Jez and Jon look back at the weekends games as the men narrowly lose to Tel Aviv Heat whilst the women continue a bonus point garnering start to the season vs Wasps. And Eddie Jones may not want to listen in as we look back at England being taken apart by the Boks.Plus we remember a true Rugby great, Doddie Weir, whilst catching up on Jez's running challenge fundraising for the Motor Neurone Disease Association. 

Donate to the Motor Neurone Disease Association https://www.justgiving.com/fundraising/liftmeup2022Join the WH team on weightlifting.aihttps://weightlifting.ai/This was my first time competing in years. Things however didn't exactly go to plan... such is sport, and such is life! But there are many positives that can be taken away from such an event in life. You either get down on yourself and the situation or you look for the many positives that come out of it.The last few months of training have been a joy, and whatever the MRI shows I'm sure I'll be more than equipped to handle!Thanks to all who stuck around and watched my 'journey' back to the competition platform. If you want to train like I have been and like an enormous number of like-minded weightlifters are then consider joining our team https://weightlifting.ai/If not then please consider donating to a great cause:Motor Neurone Disease Association https://www.justgiving.com/fundraising/liftmeup2022

Today Claire Pedrick MCC is talking to Kirsty Elderton about disaster ethics What do you need to be thinking about? Scenario Clients Action Reflection Claire's off on her long walk next week, walking 600km with friends across northern Spain. Follow their progress on their Facebook page. If you'd like to donate, you can do that through Just Giving. While Claire is away, 3D will be donating 10% of all sales through the 3D Website to the Motor Neurone Disease Association.   Contact Kirsty via Linked In

Drumshanbo endurance runner Ricki Wynne will attempt to run up and down Croagh Patrick in Co Mayo continuously for 24 hours, starting this Saturday, June 11th, to raise money for the Motor Neurone Disease Association - and to set a new world record in the process. Austin O'Callaghan spoke to him to find out if he's mad... (To make a donation, visit idonate.ie/rickiwynne)

Fay and Emma of Match My Workout catch up with Chris and Finlay on day 61 of their attempt to run 100 marathons in 100 days - a Guinness world record attempt at the most consecutive marathons run by a female. That's 2620 miles in total, at just over 183 miles per week. No days off.The Aberdeenshire-based personal trainers started their challenge on February 19, and if successful, will complete their 100th marathon at the Edinburgh Marathon Festival on May 29, raising money for Macmillan Cancer Support and the Motor Neurone Disease Association following the losses of Emma's mum and Faye's dad. This is a great insight from inside the toughest part of a truly mind-blowing physical and mental challenge, all done for very worthy causes. To get in touch, email: thepod@run4it.com.

FF7 Materia Lockdown https://twitter.com/ff7mld Materia Lockdown @FF7MLD is fundraising for Motor Neurone Disease Association (justgiving.com) --- Send in a voice message: https://anchor.fm/bills-jrpg-adventures/message

Kitty and Ronaldo chat with Peter 'Roo' Wheeler about the epic fundraising virtual run in aid of Motor Neurone Disease Association he is currently undertaking Motor Neurone Disease is a cruel disease that deteriorates the body over time, leaving your body without movement.  If you are able to do so , please consider donating to Peter's just giving page - the link is below. The money raised goes directly to the Isle of Wight branch, helping people on the island with this disease, as well as the aftercare to families during and after their loved one has passed away. www.justgiving.com/fundraising/roowheeler #teammnd #lejog  #landsendtojohnogroats  MND Association MNDA - Isle of Wight Vectis Radio

This episode we are joined by the fabulous Juliette Herrera from Season 8 of The Bachelor AU! We get caught up on Juliette's life post-Bachelor, get some more insight into the events of Locky's season, and most excitingly - Juliette helps us with our traditional first impressions of the incoming crop of contestants, based on what scant info we can glean from their Tenplay bios and their Instagram pages. Find Juliette on Instagram & Cameo, and look out for her forthcoming YouTube page! Find more info on the Motor Neurone Disease Association of NSW on their website.

An episode not to be missed this week. After finishing his seventh marathon in as many days in support of Rob Burrow and the Motor Neurone Disease Association, Leeds Rhinos Director of Rugby Kevin Sinfield joins us.Will and Rupert also reflect on the finale of the Autumn Nations Cup and Tri-Nations, before looking ahead to the return of European Rugby.

After another busy week in Super League, Sky Sports rugby league expert Barrie McDermott sits down with Marc Bazeley to discuss all the latest talking points on this week’s Golden Point Podcast.One of the biggest pieces of news to come out of the week was Ian Watson’s decision to step down from Salford Red Devils, with Huddersfield Giants rumoured to be his next destination.McDermott gives his thoughts on what might await Watson if he does take over at the John Smith’s Stadium, plus who could replace him at the helm at Salford.There is a discussion about the teams both in rugby league’s heartlands and beyond vying to replace Toronto Wolfpack in Super League next year, along with the future of the sport’s North American experiment.Plus, former Leeds Rhinos prop McDermott tells us more about his involvement with the Burrow Seven racing club to raise money and awareness for the Motor Neurone Disease Association and gives us his Super League play-off predicitions.

This episode explores advanced neurological conditions with Palliative Nurse Consultant Diane Laverty. Diane has over 30 years experience in palliative care and spent time in her doctorate exploring informal carers needs when looking after those with progressive neurological conditions. Motor Neurone, Parkinson’s and Multiple Sclerosis conditions are discussed, common symptoms and potential exacerbations are covered and the wider social implication on family and carers are discussed. Further reading: - Motor Neurone Disease Association https://www.mndassociation.org - Parkinson’s Foundation https://www.parkinson.org - Multiple Sclerosis Society https://www.mssociety.org.uk/about-ms/what-is-ms - Oxford Handbook of Palliative Medicine (2019) We hope you enjoy the episode.

In this fifth episode, Mel interviews Claire Pedrick from the UK. She's a Systemic Executive and Mentor Coach and been Coaching over the past 3 decades. Claire started Letchworth Walks to D'Feet MND a community of walkers doing half marathons and raising money for the Motor Neurone Disease Association. She has a Prime Minister's Points of Light Award for this. Be a Certified Coach who Impacts Lives with your "Light". Head to Catalyst Coach today! www.catalystcoach.live

The McKenna Family have worked several lifetimes at the Nursery in the Monks of Collon which alas will close for good on August 16th - Yvonne McKenna had her say today. Shane Maguire cycled across America to test himself and raise funds for the Motor Neurone Disease Association of Ireland. Apprenticeships and Adult Education were under the spotlight with the LMETB today. We heard from Ashbourne Rugby Club who are doing their bit to support awareness and a number or organisations in the area of Mental Health. See acast.com/privacy for privacy and opt-out information.

Personal belongings of the late scientist Stephen Hawking fetched more than $1 million at an online auction. The event, called “On the Shoulder of Giants,” was headed by British auction house Christie's. It ran for nine days and sold a total of 22 items that once belonged to Hawking and other scientists. Hawking died in March 2018 at the age of 76. For most of his life, he was bound to a motorized wheelchair because he suffered from amyotrophic lateral sclerosis (ALS). The disease limited his movements, leaving his whole body paralyzed. Against the odds, he was able to continue his work as a physicist, author, and cosmologist. He also became one of the most renowned scientists. Among Hawking's items in the auction was his motorized wheelchair, which was sold at around $392,000 to an anonymous buyer. The profit will be given to the Stephen Hawking Foundation and the Motor Neurone Disease Association. The proceeds of Hawking's other items will become part of his net worth. These items include his thesis titled Properties of Expanding Universes, a publication about how time and space came to be. It raked in over $760,000. Also on sale was the first edition of his bestselling book A Brief History of Time that was stamped with Hawking's thumbprint. The book was purchased at $89,750. More than 400 people from 30 countries participated in the auction. Hawking's daughter Lucy said that the auction was an opportunity for his fans to obtain a remembrance of his remarkable life. According to Lucy, she is planning to make Hawking's other belongings accessible to the public.

Wednesday Breakfast 10th of October - International Mental Health Day7:00 Welcome to Country & Hellos7:05 Celebration of International Mental Health Day!7:15 Alternative News, focusing on the recent decision of the New South Wales government to project the Everest Cup onto it’s sails. Discussion around the citizen backlash, interference from right wing commentator Alan Jones and the media attention it has received.7:25 Featured Song Take These Blues Away by The Royal High Jinx.7:30 Interview with Ros Knight, President of the Australian Psychological Society talking about the recourses and services the APS provides and how we can reach out to people in our community.7:40 Featured Song MEXICANA by Opal Ocean.7:45 Interview with Rodney Harris the Chief Executive Officer of the Motor Neurone Disease Association of Victoria talking about the four state based neurological organisations representing over 80,000 Victorians with debilitating health conditions who are lobbying the government to ensure funding gaps effective from 1 July 2019 do not result in a loss of services to 80,000 people with neurological conditions.8:00 Community Service Announcements8:05 We talk to student Wesley and Mayor of Monash Paul Klisaris about the “Raise Your Hand for Monash Youth” campaign which is calling for a Headspace Facility in the Council of Monash. The campaign is run entirely by students in association with the council and is intent on making sure that kids in the council have adequate support to the services and resources they need.8:15 “Life is Waiting” Film Fundraiser this Saturday (15th) at the 6pm at the Loop Bar8:20  Special Segment featuring community responses to the Definition of Mental Health – what’s your definition of Mental Health? What do you do to keep mentally healthy? 

Want to know what it's like to do a lap of Australia camping in tents? How about riding a bike around Australia? How about both at the same time? We're joined by Diana from One Year on Our Bike (@oneyearonourbike) as our Family of the Week. Although we're inspired by hearing the stories of all families and their extended travels, this family is the definition of inspirational. They're doing a lap not just for their own enjoyment, but to support the Motor Neurone Disease Association of Queensland Inc. (MND). They have a goal of raising $50,000 for the organisation; if you would like to support their cause more information can be found here https://give.everydayhero.com/au/one-year-on-our-bike In this episode we discuss downsizing, preparing for their lap, tenting it up in the tropics, overcoming obstacles, what (little) gear they have, managing food/water, and more...

One of rugby union's finest players, the South African, Joost van der Westhuizen died this week at the age of 45. Diagnosed with motor neurone disease in 2011, he set up the J9 Foundation to raise funds for awareness of MND and help support families of those with the disease, dedicating as much commitment and energy as he did to his rugby career. Dr Franclo Henning - the Chairman of the Motor Neurone Disease Association of South Africa tells us how van der Westhuizen inspired others to keep battling the disease. Million dollar pitcher Softball player Monica Abbott is the first woman in American team sports to sign a million dollar contract. Her deal with the Scrap Yard Dawgs in Texas means she is in receipt of the most lucrative contract ever awarded to a female athlete in team sport. She tells us how she finalised the deal. Fair play in India India recently launched its first ever national women's football league. It may only feature six teams but it's being seen as a crucial moment for the sport in the world' largest democracy. We're with England and Manchester City Women footballer Jill Scott as she travels to Kolkata to encourage girls to take up the game Re-united In 1970 Bronwyn Burrell was one of a handful of women who took part in the World Cup Rally, from London to Mexico. Now in her 70s, she's re-united with her car and one of her co-drivers to take part in this year's Lisbon Rally. She tells us how she's preparing for her first rally in decades. And Sporting witness The story of one of the best-loved - but least successful - football teams in Europe: Germany's FC St Pauli. Claire Bowes has been talking to long-time fan Sven Brux about punks, politics and the most unlikely win in the club's history.

Big thankyou to Rick from the Ti Tree Hotel Warrion for taking time to discuss the Show n' Shine event that's happening tomorrow to raise funds for the Motor Neurone Disease Association

On Today's show we are taking a look at motor neurone disease as part of motor neuron disease week which runs during the first week of May each year.   This disease is a progressive degenerative neurological condition which causes the loss of function of the nerves that that control muscles. As a result there is loss of control of the ability to walk, to communicate and eventually breath. Although Stephen Hawking has lived with the condition for over 50 years his case is an extremely rare slow progressivng form. The majority of people progress rapidly results int death in about 27 months from the time of diagnosis.   As of 2011 nearly 2000 peopel where diagnosed with the condition in Australia and there were an estimated 420,000 diagnosed worldwide. So what is like for people living with this condition? What do we currently know about what causes it? Are there any treatments available? And how can we get invovled to support the people and their families who ar affected by motor neuron disease. To answer these questions and more we will be joing by Graham Opie, CEO of the Motor Neurone Disease Association of New South Wales.   Links to Motor Neurone Disease Association of NSW and Australia: www.mndnsw.asn.au www.mndaust.asn.au

CliffCentral.com — Another episode of health news with Katharine Child from The Times. Sheila Kendal from the Motor Neurone Disease Association of South Africa chats about the ALS Ice Bucket Challenge.